Slides - National Center for Ease of Use of Community Based Services

Partnering to Make Services Easier to Use for
Latino Families with CYSHCNPA Experience
Facilitator: Myra Rosen Reynoso
Presenters: Diego Chaves-Gnecco, MD, MPH
Renee Turchi, MD, MPH, FAA
Emilio Pacheco, MHS
March 21, 2012
Today’s Discussion
—  SALUD PARA NIÑOS – Diego Chaves-Gnecco
—  EPIC-IC Medical Home Initiative – Renee Turchi
—  Vision for EQuality, Inc. – Emilio Pacheco
Webinar Learning Objectives
—  Increase awareness and knowledge of the ease of use of
services for Latino families with CSHCN (in particular, PA)
—  Explore how the presenting organizations can serve as a
model for other states/organizations
—  Examine specific examples of partnerships, activities, and
lessons learned to make services easier to use for Latino
CSHCN in PA
Latino Families with CSHCN in
Pennsylvania
—  59% of Latino families in PA met Outcome 5 (ease of use of
community-based services)*
—  Difficulties and delays most often cited by Latino parents
—  Waiting lists
—  Eligibility criteria
*National Survey of Children with Special Health Care Needs-2010
www.childhealthdata.org
Providing Health Care for an
Invisible Community:
SALUD PARA NIÑOS
Celebrating 10 Years of Services
Diego Chaves-Gnecco, MD, MPH
Program Director
Assistant Professor - Dept. of Pediatrics
University of Pittsburgh
SALUD PARA NIÑOS
(Health for the Children)
—  Program Aims
—  Methods - Program Description
—  Results
—  Conclusions
—  Future Initiatives
SALUD PARA NIÑOS
Program Aims
1.  Reduce health disparities
2.  Combat social isolation
3.  Partner with community agencies
4.  Permit systematic data collection
5.  Create an ideal environment for
developmental screening
Design
—  1st pediatric bilingual/cultural competent clinic in
SWPA
—  Created 10 year ago as Medical Home for Latino
children and families
—  Provides traditional primary care services at CHP,
Birmingham Clinic & CHP Care Mobile
—  Increase prevention and empower community to
address its own health
SALUD PARA NIÑOS
CHP Clinic
—  Bilingual-bicultural
clinic at CHP PCC:
—  Tuesday mornings
—  Thursday evenings
—  Friday mornings
—  Staffed by Spanish
speaking physicians,
nurses, and volunteers
SALUD PARA NIÑOS
Birmingham Clinic
—  Pediatric clinic
—  2nd Saturday of the month
—  Partners with SALUD,
medical student initiative via
Program for Underserved
Populations
—  Community support
—  University of Pittsburgh
—  Salvation Army support
—  Americorps members
SALUD PARA NIÑOS
CHP Care Mobile
—  40-foot long
—  Donated in 2001 by
Ronald McDonald House
Charities
—  Once a month at
Birmingham clinic
—  Increase room availability
—  Track medical records
SALUD PARA NIÑOS
Community Programs
Co-organize
community fairs
—  Promote healthy habits
and ongoing programs
—  Distribute health
information
—  Give presentations
about child care and
current health topics
SALUD PARA NIÑOS
Community Programs – CPR Classes
Literacy Program
Bilingual-Bicultural Appropriate
Health Materials
AAP PA Chapter IEP
Spanish Phone Line
412-692-6000 option 8
Latino Car Seat Checks
AAP PA Chapter
TECHS
Results
SALUD PARA NIÑOS
Numbers served
900
800
700
600
500
400
300
200
100
0
2004
2005
2006
2007
2008
Years
Patients enrolled
2009
2010
2011
Results
—  1000 visits/year
—  ~ 100 children assisted
with obtaining health
insurance
—  Partner with Consumer
Health Coalition
—  Several sub-specialty
clinics started
Latino Car Seat Checks
—  Since summer of 2003
—  16 events planned and
organized
—  429 car seats checked
—  210 car seats replaced
—  First bilingual-bicultural
certified TECH
Latino Car Seat Checks
Crash kills 1, injures 3
By Glenn May
Monday, December 19, 2005
María
Before
—  11 year old with Cerebral Palsy, not walking
—  No health insurance
—  Traveled 2 hours for primary care
—  No handicap license plate
After
—  Health insurance and handicap license plates obtained
—  Baclofen pump placed
—  Home and school visits by LEND interdisciplinary team
—  Now walking and dancing
Martha
Before
—  Mother observed seizures in well baby nursery, unable to
communicate concern
—  48 hour delay in transferred to NICU
—  Found to have a stroke with hemi-paresis
After
— 
— 
— 
— 
— 
Inpatient/outpatient care coordination provided
Linguistic and cultural competent care provided
Referred to Early Intervention
Weaned from anticonvulsive medication
Completely recovered motor function
Guadalupe
Before
—  10 year old with Autism
—  Mother eager to be advocate for her daughter and for her
community
—  Unsuccessful attempts to join local advocacy groups
After
—  Connected the mother to a training grant for early intervention
specialists
—  Help to create first advocacy group for Hispanic parents of
children with special needs in region
Conclusions
—  Need for culturally and linguistically competent
health care for Latino children
—  No need for new resources or services in most cases
—  Most services are in place and just need to be
connected and/or adapted
—  Prevention pays
Future Initiatives
—  Increase access
—  Health insurance
—  Personnel to staff the programs
—  Improve systematic data collection
—  Increase and improve developmental screening
—  By improving access
—  By improving systematic data collection
—  Continue working in prevention & promotion
—  Future research initiatives
¡¡Gracias!!
Partnering to Make Services
Easier to Use for Latino Families
with CYSHCNPA Experience
Renee Turchi, MD, MPH, FAAP
March 21, 2012
Background
—  Medical home is standard of care for all children
—  Larger percentage of Latino CYSHCN in PA vs
National (2009-10 National Survey CYSHCN)
EPIC-IC Medical Home Initiative
—  EPIC-IC s mission is to enhance the quality of life
of CSHCN through recognition and support of
families as the central caregiver for their children,
effective community-based
coordination,
enhanced
communication,
and primary
health care.
EPIC IC Medical Home Sites
• Participated in Medical Home implementation
• Has received Medical Home Outreach/Education
• There are 97 sites that have participated in implementation (green dots) and 28 sites (yellow dots) that have received education marked on this map dated
1/19/12.
• Some pushpins may overlap when sites are in close geographical proximity.
How do practices participate?
—  Quality improvement teleconferences
—  Fall & Spring Conferences
(networking opportunities)
—  Education
— 
— 
— 
— 
— 
Identification of CYSHCN
Parent Partner recruitment and utilization
Coding
Time Management
Hot topics like transition, cultural competency, family-centered
care, obesity, etc.
—  Quality improvement cycles
Cultural Competency Conference
—  Planning committee
—  National Center for Cultural Competency
—  MCHB
—  Break out sessions
—  Action Plan
—  Provider Self Assessment (NCC)
Advocating in Practice
—  Ciracom Phones
—  Role of Cultural Brokers
—  Community Partners
—  Resources for families
Autism Conference for Families
—  Planning Committee
—  Community Partners
—  (Visions, Families, CAR, CHOP, SCHC, Asert, BAS)
—  All presentations in Spanish
—  Resource Fair
—  Reverse Translation
POR FAVOR UNASE A NOSOTROS EL
Jueves 7 de Octubre
9:00am - 3:00pm
Autismo y Trastornos del Espectro Autista
Discusión, Sesión de Preguntas y Respuestas con
Emily Iland
De Habla Hispana, Consultora Educativa basada en Los Angeles-CA y portavoz de ASD
En el Hospital
St. Christopher’s
Comuníquese con María Meléndez para hacer su reservación
267-765-0309
i Desayuno Continental a las 8:00 am y Almuerzo a las 12:oo del mediodía
i Tokens de Septa Gratuito y Parqueo Gratuito serán ofrecidos a los participantes
Role of Technology for Latino
Families
—  Website
—  Social Networking Site
—  Resources and Brochure
—  Translation equipment
www.pamedicalhome.org
!
Especially for Parents
—  Especially for Parents is a web community designed with the belief
that parents of children with special needs are experts who valuable
insights and information to share.
—  Members are able to start discussions, share tips, tricks, and shortcuts,
offer support to others, write a blog, create a group for parents with
similar interests or situations, create a virtual meeting spot for a local
community group, promote events, and invite friends to participate.
—  Community members include parents, doctors, nurses, social workers,
non-profit employees, and government employees who are interested in
helping children and youth with special needs reach their full potential.
Practice team members are encouraged to join the community!
—  To join the community, visit www.pamedicalhome.org and click on the
Parents button. Please tell your parents about the community as
well!
Key Partnerships
—  Families
—  Youth and patients
—  Pediatric practices
—  PA Dept of Health-Bureau of Family Health (Title V)
—  National Center for Cultural Competency
—  AAP-National Center and PA Chapter of the AAP
—  National Got Transition Center
—  MCHB
—  Parent organizations-F2F (PEAL in PA), P2P
—  Community Partners-Visions, Hune, Congresso
Thank you!
Please keep building.
Everyone deserves a medical home.
• Photo by maureen crosbie
• http://www.flickr.com/photos/maureencrosbie/3273777533/
Emilio Pacheco, MHS
Senior Manager of
Programs
Vision for EQuality, Inc.
About Vision for EQuality, Inc.
—  Culturally Competent Services Through Outreach,
Referral, Translation, Interpretation and Advocacy
For Latino Families with Children with Special
Health Care Needs
Background
—  Latinos now appear to be the largest ethnic minority
population in the US
—  Hispanic families with CHSCN who speak Spanish as
their first language are not receiving needed services
—  Many of our public service systems are unprepared to
meet the cultural competency needs of minority
populations.
Spanish-Speaking Families’
Experiences
—  Report access to services is confusing, impenetrable,
and often lacking in compassion
—  Do not know where to go for help
—  Feel eligibility criteria are unclear
—  Problems are compounded when family has a
CHSCN
—  Still very much under represented in terms of
service response
Helpful Strategies for Program
Development
—  Research has shown that public education through
peer-led sessions effectively addresses knowledge
gap for most minority community members
—  It is well established that members of the Latino
community prefer information from the people they
trust and by word of mouth
Community Collaboration
Community Collaboration
—  Collaborators
— 
— 
— 
— 
— 
Vision for EQuality, Inc.,
The PEAL Center in Pittsburgh
PA Chapter, American Academy of Pediatrics
PA Department of Health
EPIC IC Medical Home Initiative
—  Additional Partners
—  Department of Public Welfare
—  Office of Developmental Programs
—  Philadelphia County IDS
—  Funding
We recognize the need for cultural competence within the disability community for Hispanic Families
with CHSCN.
Community Collaboration
—  Description
—  Who we are empowering
—  Latino Families who speak Spanish as their first language
—  Families who have CHSCN
—  Families who are not receiving services or supports
Community Collaboration
—  Findings
—  The language barrier prevents Latino families with CHSCN
from accessing services that are available to them.
—  Many Latino families are unaware that there are services
available to help them
—  Constraints
—  Funding
—  Time
—  Difficulty identifying families willing to participate
Outreach
Community Collaboration
—  Successes
—  Families are able to receive training on topics explaining how
to navigate the system
—  Families are able to receive services
—  Government agencies began translating and distributing
resources into Spanish
—  Hispanic family support group established
Abriendo Caminos a los Latinos con Familias Excepcionales.
Family Training in Spanish
Community Collaboration
Services
—  Receiving services
allows JR and his
family to be fully
included in community
activities.
Resource Distribution in Their
own Language
Simultaneous Interpretation
—  Currently, we provide translation and interpretation
services as well as advocacy to the Latino
population
Hispanic Parent Support Group
Advocacy and System Change
—  Recommendations for the future
—  There is still much work to be done
—  Expand the project
—  Hire more Spanish speaking direct support workers, support
coordinators, advocates, translators and interpreters
A VOTER Exercising His Rights
Acknowledgements
—  This webinar is supported by Grant No. U42MC18283 from
the Maternal and Child Health Bureau, Department of Health
and Human Services. Its contents are solely the responsibility
of the authors and do not necessarily represent the official
views of the Maternal and Child Health Bureau, Health
Resources and Services Administration, or HHS
—  We would also like to thank Suzanne C. Yunghans, Executive
Director of PA Chapter, American Academy of Pediatrics, for
assistance in organizing this webinar.
Contact Information
—  Renee Turchi, MD, MPH, FAAP
St. Christopher’s Hospital for Children, Philadelphia, PA
215-427-5331
[email protected]
—  Molly Gatto, MHA
PA Chapter, American Academy of Pediatrics, Media, PA
484-446-3039
[email protected]
—  Suzanne C. Yunghans
Executive Director
PA Chapter, American Academy of Pediatrics
484-446-3000
[email protected]
www.paaap.org
Contact Information
—  Diego Chaves-Gnecco, MD, MPH
Program Director
Assistant Professor – Department of Pediatrics
University of Pittsburgh
[email protected]
http://www.chp.edu/CHP/spanishclinic
—  Emilio Pacheco
Senior Program Manager
[email protected]
—  Myra Rosen Reynoso
Program Director
National Center for Ease of Use of Community-Based Services
[email protected]
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