“CLIFF WALK®” Edition Newsletter

A.L.S. FAMILY CHARITABLE FOUNDATION, INC.
Special “CLIFF WALK®” Edition Newsletter
Supporting Patient Programs & Research For
Amyotrophic Lateral Sclerosis-Lou Gehrig’s Disease
November 2011
P.O. Box 229 | Buzzards Bay, MA 02532-0229 | T 508.759.9696 |
F 508.759.9606 | www.alsfamily.org
15th Annual “Cliff Walk®” for A.L.S. Fundraiser Raises $165,000!!
Our 15th Annual “Cliff Walk®” for A.L.S.
Fundraiser, held on Sunday, September 11,
2011, sponsored by Superior Rail & Iron
Works, attracted nearly 1,000 participants and
raised over $165,000 for the fight against Lou
Gehrig’s Disease!
Our event was also sponsored by Cape Cod
Broadcasting, and supported by Emerald Physicians,
Denmark Cleaning Services, Best Buy, TD Bank,
Roche Bros. Supermarkets, Thomas J. O’Neill, Inc. of
Mashpee, the Ninety Nine Restaurants, Sodexho @
MBL, South Coast Women’s Journal, Patients Like Me
and the Cape Cod Times.
The Wareham High School ROTC kicked off the
event with a presentation of the colors and Jessica
Current sang the National Anthem. Foundation Board
Secretary David Phillips was our emcee.
This year our Walk fell on the 10th Anniversary of the
September 11th attacks of 2001. Kevin McElligatt,
a first responder at Ground Zero, led a moment of
silence, and rang a bell ten times to signify the passing
years.
Kevin McElligatt
Jessica Current
Special thanks to our entertainers, “Pocketfull of Soul”
and Amber Crowley, a multi-talented local ER doctor
who volunteers to perform at charitable events.
Cecilia Colucci
Attendees were also treated to the emotional debut
single, “Keep The Light On”, written by our good friend
Tom O’Neill and performed by Cecilia Colucci and
Pat Ryan of Full Spectrum Music. Tom was touched
by A.L.S. when he lost a close personal friend to the
disease. He became involved with the foundation
over 3 years ago after seeing first hand how “warm,
Engraved bricks honoring
caring, passionate, hardworking, and dedicated” our
our patients surround our
Foundation is towards the cause.
Once again our friends from the Ninety Nine
Restaurant of Wareham provided delicious seafood
chowder and chicken & corn chowder. Thanks to their
team of volunteers!
Thomas J. O’Neill
“Family Tree”.
Dr. John Lincecum, an expert in gene therapy for
Motor Neuron Disease and Director of Discovery
Biology at the ALS Therapy Development Institute
spoke about the research taking place at ALSTDI and
invited everyone to visit.
Jean Jordan reminded us all of the legacy of Cliff
Jordan, Jr., Edward J. Sciaba, Sr., and Janice Ferrara
and the work their families continue to do.
Amber Crowley
Dr. John Lincecum
Co-Founders Mary Ann (Sciaba)
Singersen and Donna Jordan with Lenny
Ferrara of Superior Rail & Iron Works
(center)
Every year the “Cliff Walk®” is made possible because of the dedication and determination of a huge
team of warm and wonderful people who have made it their mission to host a truly amazing event, and
to ultimately help find a cure for A.L.S.
Special Thanks To:
Raffle Items Donated By: Wal*Mart, Music
of the Bay, Blast From The Past, Stop & Shop, The Hair
Boutique II, Chili’s, Target, J.C. Penney, Bernie & Phyl’s
Furniture, Red Top Sporting Goods, South Cape Village
Hair & Spa, Big Y Foods, Inc.,The Chateau Nocera’s
Restaurant, Z Donut Company, Walgreens, Donna Tenn,
Jacki Thomas, Bill MacLeod, Dianne Faron, Pat Perry,
Midge Cristofori, Joyce Beauregard, Alice Lester and
Carol Oliveria.
Goods and Services Donated by:
Breakaway
Barbeque Grills, Sodexho at MBL, Cape Dairy, Monument
Beach Pizza, Coca-Cola, Stop & Shop, Hi-Way Concrete,
Brewster Ice, Bourne DPW, Dunkin’ Donuts, Corp
Brothers, Inc., Bouse House, Ocean Spray, Sperry Tents
MacRae Prov./Boar’s Head, A.H. Harris & Sons, Inc.,
Vermont Pure Water,Thrifty Truck Rental , Red Top
Sporting Goods, Late July Snacks, Auto Promo, Inc.,Sign
It! Signs, Etched In Stone, Bailey’s Surf N Turf, National
Marine Life Center, Taylor Rental - No. Falmouth,
Guardian Self Storage, Olson’s Garden Center, Lower Falls
Wine Company, Enterprise Newspapers ,The Image & Mail
Factory, Twin Bridge Productions, Denmark’s Cleaning
Service, Cape Electronics, US Army Corp. of Engineers.
Special thanks to the Jordan, Sciaba and Ferrara families
for their unending support.
Time and Good Will Donated by:
Team Leaders:
Lynne Florindo, Dan Hyde, Mary Johnson, Linda Abreu, A.J.
Azinger, Terry Chalker, Tim Denmark, Tara Cronin,
Wareham High ROTC, Dianne Faron, Jeff Beals,
Pam Desruisseaux, Derek Sutton, Dennis Cronin & Donna
Jordan. Photographers David Heaney, Jacqueline Tome and
Lou DiPalma, Volunteer Coordinator Debbie Bell, Event
Coordinator Bill MacLeod, and EMCEE David Phillips.
Best Buy of Plymouth employees volunteered their time
as part of their Tag Team Award Grant Program. Several
members of the Cape Cod Corvette Club donated their time
as well.
Thank you to the Mass Maritime Cadets for all their hard
work!!! They stepped in wherever needed and ensured a
smooth event.
Thanks to Lindsey Morse for offering her massage
services.
Thank you to Dave Heaney of Heaney Images for taking
photos of the teams for a small fee, with all proceeds going
to the Foundation.
Thanks to Scott Cody of Twin Bridge Productions; his video
PSA’s about the Foundation can be found on our website
and on youtube.com.
Volunteers sold A.L.S. wristbands (in memory of David
M. Dorfman) and bracelets (in memory of George Kerr) to
raise additional funds for our Organization.
Thanks to our highest fundraisers and ALL our walkers and Teams!!!
The Funds you raised by participating in our “Cliff Walk” support our in-house patient programs and research efforts,
please read the back page of this newsletter to learn more about where your dollars are going.
Thank you to those that brought scratch tickets, you helped to raise an additional $600 for the Foundation.
CONGRATULATIONS TO OUR HIGHEST FUNDRAISING WINNERS!!
The Grand Prize winners in the adult category, Lee Moore of Team Bobby Murray, won a $500 Best Buy gift certificate,
courtesy of an anonymous donor.
The 2nd place winners in the adult category, Jeremy & Shelly Dorfman and Alyssa Bickoff of Team David, received a
$300 Best Buy gift certificate courtesy of an anonymous donor.
Third prize of a $50 Best Buy gift certificate and an Insignia Digital Camera, courtesy of Best Buy, went to Mary Vagenas
of Team Georgios.
The Grand Prize in the children’s category, an Asus EEE Transformer Tablet, courtesy of Charlie, Ryan and A.J. Azinger,
went to Serena McMahon of Team Eddie Tenn.
The runner-up, Jacob Lawrence of Team Knot To Worry, received a Magnavox DVD Player courtesy of Ruth Nyberg
and a JVC CD Portable System courtesy of Walgreens.(Photo not available)
Third prize in the children’s category was a $50 gift certificate & Sharper Image Video Camera courtesy of Best Buy and
went to Darian Allen of Team Coach Cotter.
The winner of the Coloring Contest Nicole G. age 6, went home with art supplies and novelty items.
Team Bobby Murray
Thank You!!!
Ken Davis of Randolph is
raising funds throughout
the year in memory of his
father-in-law Richard
Connors. His program
is called “Scrap A.L.S”.
Contact us to find out how
to donate your scrap metal
to Team Connors.
Alyssa Bickoff
& Jeremy Dorfman
Mary Vagenas
Serena McMahon
Darian Allen
THANKS EVERYONE for a wonderful event!
See you at the 16th Annual Cliff Walk for A.L.S. Fundraiser
on Sunday, September 9, 2012!!!!!!
Ken & Sherry Davis
Visit www.alsfamily.org for more photos
NON-PROFIT
PRSRT STD
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PO Box 229
Buzzards Bay, MA 02532
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We’re here to help. Please contact Patient Services
Coordinator, Debbie Bell to benefit from any of our services.
•The A. George Kerr Patient Program assists patients with
financial needs.
•The Heath Millward Vacation Fund provides patients and
their families with memorable excursions.
•The Children’s Program provides financial assistance for
expenses such as the holidays, back to school shopping
and summer camp.
•The Jan Ferrara Get Away for a Day Fund provides funds
for individuals or groups of patients or caregivers to enjoy
an outing of their choosing.
•The A.L.S. Family Charitable Foundation, Inc.,
Scholarship Fund offsets the financial strain of a college
education for a child of an A.L.S. patient.
•The Respite Care Grant Program provides assistance for
respite care to patient caregivers.
“Cliff Walk®” proceeds fund the David M.
Dorfman Research Fund at ALSTDI,
working to develop effective therapeutics that stop
A.L.S. as soon as possible.
Dr. Robert Brown, Department Chair of Neurology at
the UMass Memorial Medical Center has
produced some of the most cutting-edge and
creative projects in A.L.S. research.
Patient Program Renamed to Honor “Papa G”
We were saddened to learn of the recent
passing of our good friend and longtime
supporter, George Kerr of Hull, MA &
Ft. Pierce, FL. To celebrate his
tremendous spirit, courage and the light
and laughter he brought into the lives
of all who knew him, we renamed our
Patient Program, the A. George Kerr
Patient Fund.
SAVE THE DATES!
Deep Stack No Limit “Texas Hold ‘Em”
Charity Poker Tournament
February 12, 2012
Annual Mother’s Day “Cruise to Cure A.L.S. “
May 12, 2012
“A.L.S. Drive Fore the Green”
Charity Golf Classic
May 21, 2012
“Danny’s Run” For A.L.S.
July, 2012
16th Annual “Cliff Walk®” For A.L.S. Fundraiser!!!
Sunday, September 9, 2012