a message from our board president the rezak report a new long

progress
w w w. p a r k i n s o n s p r o g r e s s . o r g
PA R K I N S O N ’ S D I S E A S E R E S E A R C H S O C I E T Y
Facing the challenge...Finding the cure
SPRING 2013 - ISSUE NUMBER 20
A M ESS AG E F R O M O U R B O AR D P RE SID E NT
Dear Friends,
It has been an exciting start to the New Year for PDRS. Most
newsworthy, PDRS has completed payment on a $1.4 million
pledge to Cadence Health in support of Dr. Rezak’s pioneering
work in the field of Parkinson’s.
This contribution will be used to help Dr. Rezak and Cadence
establish the most comprehensive patient care and clinical
research center in the country.
The need remains clear:
n Parkinson’s Disease is the most common movement disorder.
n 2 million people in the US currently are diagnosed with Parkinson’s disease, and
70,000 new cases are diagnosed each year. Hundreds of thousands of baby boomers
will be affected in this decade, alone.
n Although Parkinson’s disease usually affects people over age 50, eight to ten percent
of patients are under 40 when diagnosed.
n Scientific investigators anticipate several key research breakthroughs in the next five years.
Currently, Dr. Rezak, Dr. McGraw and their team serve over 1,000 patients. Additionally,
the medical team performed 42 Deep Brain Stimulation procedures last year, more than
any other medical center in the Midwest.
As many of you know, we officially partnered with the Cadence Health Foundation
last year. In turn, for financially supporting Dr. Rezak’s work, the Foundation staff has
committed to assisting us with all of our events. Our partnership with this vibrant medical
center allows us to redouble efforts to raise needed funds.
Cadence Health shares PDRS’ vision. The medical center, located in the western suburbs
of Chicago, is rated one of the top 100 hospitals in the country, with medical specialties
in the fields of Neurology, Pediatrics, Orthopedics, Cardiology and Pediatrics. Cadence
is partnered with the Cleveland Clinic in both fields of Cardiology and Oncology
(Cleveland Clinic has been rated #1 in Cardiology by the US News and World Report
18 years in a row. It is rated #9 in Oncology). Children’s Lurie Hospital is also affiliated
with Cadence – bringing the expertise of an urban academic medical center to the
western suburbs of Chicago. Cadence serves an area extending 400 square miles, serving
1.1 million; or 1 out of 4 people in Chicago’s Western Suburbs.
As I enter upcoming PDRS events in my calendar, I am reminded that we have a busy
year ahead of us. More than ever, we need your help to reach our goals and impact the
lives of those battling Parkinson’s disease.
Thank you for your continued support in our quest to “Find a Cure”.
Carol Santi, President
THE RE Z AK REPORT
Dr. Michael Rezak, a neurologist and
Movement Disorders Specialist, also
serves as the Medical Director of the
PDRS and the APDA Midwest Information
and Referral Center and National Young
Onset Center. He practices exclusively
at the Neurosciences Institute of Central
DuPage Hospital where he heads
the Movement Disorders Center and
the Movement Disorders Functional
Neurosurgery Program.
A NE W LONG
AC TING C AR BIDOPA /
LE VO D OPA
FO R MULATION
MI C H A EL R EZ A K, M.D., PH .D.
Rytary™ (formerly known as IPX066),
although not yet released, has been
shown to be effective in treating both
early and later stage Parkinson’s disease
symptoms. It is a unique formulation of
carbidopa/levodopa due to its longer and
more stable duration of action compared
to immediate release carbidopa/
levodopa or even carbidopa/levodopa
with comtan (Stalevo®). Rytary™
capsules are manufactured so that they
contain beads that release carbidopa/
levodopa at different rates as they
dissolve, thereby allowing absorption in
the gastrointestinal
tract
over
a
prolonged period
of time. At the
same time, this
means higher doses
of levodopa are
required to achieve
The Rezak Report continued on page 3
www.parkinsonsprogress.org
YOU’VE BEEN DIAGNOSED WITH PARKINSON’S DISEASE, NOW WHAT?
B Y A L I S ON MON ET T E, R N , BS N
GET SUPPORT
Terminology
There is immeasurable value in organizing a team of people who
will travel through this journey with you. Your core support
circle should consist of the people who you know and trust the
most, be it family, friends or both. Discuss the diagnosis and
your feelings about it to help you come to a place of greater
acceptance.
Start with the basics of the disease and familiarize yourself with
commonly used terminology so you can communicate to your
physician what symptoms need to be addressed. Some commonly
used terms include:
ON/OFF: “ON” time is when you are functioning best, your tremor
is well controlled and/or your movement is less slow and less rigid.
“OFF” time is when you have your most parkinsonian symptoms,
movement is more difficult and you cannot function as well.
Next, you need to find medical professionals with whom you
can develop a long-term relationship. Consider working with a
neurologist who is a movement disorders specialist, as they are
the most well trained physicians to manage your symptoms and
keep you aware of advances in treatment. Look for a physician
who is knowledgeable, experienced and invested in you doing
well in every aspect of your
health. Take the time to
learn about your physician’s
philosophy of how and when
to start or change medications
as this can vary from doctor
to doctor. Consider getting
established in a practice
where your physician is part
of a multi-disciplinary team
that includes nurse specialists,
physical therapists, social
workers and other specialists
as evidence shows that this
model of care leads to the
best outcome.
Dyskinesia: involuntary rhythmic movements that usually occur
when your medications are at peak effectiveness, but can also happen
when you are OFF or wearing off.
Dystonia: involuntary spasms of
any muscle or group of muscles in
the body. Dystonia is often an OFF
symptom that occurs early in the
morning or late at night when your
medication levels are low.
Gait Freezing: your gait is the way you
walk. Gait freezing is when your feet
plant or stick to the ground, and will
not move. Gait freezing can happen
any time, but is more common in tight
spaces (like doorways or closets) and
when trying to turn. Gait freezing is a
concern as it can result in falls.
Motor Symptoms: symptoms related
to how well you move. The four
cardinal motor symptoms are tremor, rigidity (stiffness), bradykinesia
(slowness) and postural instability (gait and balance problems).
Lastly, find resources in your community. Support groups are
established in most communities for people with Parkinson’s
and/or their family members. These groups can offer you
opportunities to learn more about the disease, socialize and
express your concerns and feelings with people who are more
able to relate to what you are experiencing. If you are having
difficulty finding a support group that meets your needs,
consider starting your own. Organizations like the American
Parkinson Disease Association (APDA) can help you find or
start a group near you.
Non-Motor Symptoms: symptoms associated with the disease, but
not movement related. May include depression, sleep problems,
blood pressure fluctuations, skin changes, constipation and cognitive
deficits.
Dopamine: the main neurotransmitter, or chemical in the brain, that
is affected in Parkinson’s disease.
Medications
Parkinson’s is most often treated with polypharmacy, using small
doses of multiple medications to try to get benefit without causing
side effects. Be prepared with at least a general understanding of the
medications used in Parkinson’s when you have discussions with
your doctor. Some of the most common medications used to treat
GET EDUCATED
Take the time to learn about your diagnosis, as knowledge will
make you feel more empowered and less anxious about the future.
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Diagnosed with Parkinson’s continued from page 2
The Rezak Report continued from page 1
Parkinson’s include Carbidopa-Levodopa (Sinemet®, Sinemet
CR®, Stalevo®), Azilect®, Amantadine, COMTAN® and the
Dopamine Agonists (Requip®, Mirapex®, Neupro®, Apokyn®).
All of these medications have their own mechanism of action and
potential side effects. When you understand what you are taking,
why you are taking it, how it works, how it should be taken, and
what will happen if you don’t take it (or take too much), you will
be more of an active participant in management of your symptoms.
the same blood levels. Rytary™ has been shown to benefit
both early PD symptoms and reduce OFF time in patients
that are experiencing “wearing off” phenomenon.
In moderate to advanced PD patients that were
experiencing motor fluctuations, Rytary™
demonstrated about 2 hours per day of reduced OFF
time, improved quality of life measures and patients
rated themselves significantly more improved
compared to taking the immediate release carbidopa/
levodopa formulation. Nevertheless, dyskinesias
remained a problem. Another study looking at
Rytary™ in more advanced fluctuating patients
compared to those taking Stalevo® (carbidopa/
levodopa.entacapone) demonstrated about 1.5 hours
of reduced OFF time and there was a reduction in
dosing frequency from about 5.5 times per day to 3.5
times per day. In early Parkinson’s disease Rytary™
provided a clear symptomatic benefit. The higher the
dose, the greater the improvement in motor symptoms
and activity of daily living compared to placebo, but
side effect frequency also increased as the doses were
increased. It is expected that the dosing frequency
should be three times per day for most early PD
patients and may be reduced to around 2/3 of the
dosing frequency in more advanced patients.
Therapy
Some symptoms, like speech and gait/balance, are not responsive
to medications but are responsive to rehab therapies.
Speech Therapy: Lee Silverman Voice Treatment (LSVT Loud)
was developed specifically for Parkinson’s patients and is the best
treatment for hypophonia, or softer voice. LSVT takes commitment,
as the best results come from practicing what is learned every day.
Speech therapists can also be a resource for swallowing difficulties
and cognitive decline in the later stages of PD.
Physical Therapy: LSVT BIG therapy was later developed to
help Parkinson’s patients learn how to enlarge their movements,
and is the best intervention for gait freezing and balance problems.
Physical Therapists can also come in to your home to help make
adaptations to your environment to help reduce falls.
Occupational Therapy: Occupational Therapists (OTs) can
assist you if you are having trouble with activities of daily living,
like handwriting, using utensils or getting dressed. OTs can also
provided tools like grab bars that can help make you safer at home.
Several important questions remain with regard to
Rytary™ in early PD. First, whether Rytary™ turns
out to be more effective than immediate release
carbidopa/levodopa and has fewer side effects in
early PD awaits further studies. Furthermore, the key
question of whether there is a reduced likelihood of
developing motor complications from using a more
continuously released formulation of carbidopa /
levodopa in early PD has not yet been evaluated.
The answers to these questions will come from direct
head to head comparison studies.
Progression
Parkinson’s is a progressive disorder, but the progression is slow and
often times your symptoms will plateau for many years. It’s important
to know that no two people with Parkinson’s will progress at the
same rate, so try to avoid comparing yourself to others.
Surgery
Deep Brain Stimulation surgery is the implantation of
a neurostimulator system to help control the symptoms of
Parkinson’s disease more smoothly and consistently than
medications can. Ask questions about Deep Brain Stimulation
as a surgical option for treatment, even if you are not currently a
candidate for the procedure.
We look forward to finally having an oral long acting
carbidopa/levodopa formulation that has the potential
to allow use earlier in the course of PD if it is required.
It is the short half-life of immediate release carbidopa/
levodopa (1.5 hours) that is believed to result in the
relatively rapid development of motor fluctuations and
dyskinesias. Thus Rytary™, with its more continuous
distribution (half life of about 4 hours), may have
the capacity to reduce the probability for the future
development of motor complications in PD.
GET MOVING
Exercise is the most important thing you can do for yourself
after you receive the diagnosis. Recent studies have confirmed
that exercise can establish new pathways in your brain that
bypass the damaged areas and therefore slow the progression
The Rezak Report continued on page 4
Diagnosed with Parkinson’s continued on page 7
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T E L L M E HO W YO U R E ALLY FE E L
BY T OBY KAT Z
I listened to everything that Dr. Rezak had to say, I came to
our meetings with lists and lists of questions. I needed to feel
in control of what was going to happen to me. Things began to
move quickly. A surgical spot had opened up in two weeks, I
had to make a decision.
Hi, my name is Toby Katz. I am 59 years
old and I am a Parkinson’s patient.
“ TRUST “
It has been quite a while since my last
column. A lot has happened in my life
during the past year and “TRUST” is one
of the most important and challenging concepts that I have
had to deal with.
After weighing all of the pros and cons, I realized that I had to
“TRUST” someone. Dr. Rezak answered all of my questions
and he allayed my fears as much as possible. The odds were
in my favor. I was otherwise young and healthy, I had an
amazing family support system, in Dr. Rezak’s words “a perfect
candidate”. No surgery comes without risks, and brain surgery
goes to the essence of who we are, our spirit, our soul. Would I
wake up and still be me?
As Parkinson’s patients, we all know what it feels like to
relinquish some of our power and to be able to “TRUST”
someone else. Whether it is a caregiver, a loved one, or a
doctor, at some point we have to “TRUST” another person
to do what is best for us.
I quickly went through all of the neurological and physical pretesting. I met with the neurosurgeon and the rest of the surgical
team. I was ready and I was petrified, but I finally decided that
the only choice I had was to “TRUST”.
This can be a scary proposition. For most of us, the challenge
of having Parkinson’s requires us to gather all of our strength to
lead as normal a life as possible. Unfortunately, at some point,
we need someone else to help us along that path.
“TRUST” that Dr. Rezak would do everything in his power to
keep me safe and pain free.
“TRUST”: the firm belief in the reality, truth, ability or
strength of.
“TRUST” that he would only surround himself with the best
medical team possible. “TRUST” that his nurse, Alison, would
only leave my side to give my family updates. “TRUST” that
when it was all over not only would I still be me, but a better me.
This past year I hit a wall. My Parkinson’s medications were
no longer giving me the relief that I needed. I was also having
a difficult time tolerating the medications. Thus came “the
conversation”. It was time to consider DBS (Deep Brain
Stimulation). I never imagined that I would get to this point,
especially at such a young age.
They didn’t let me down. I am 3 months post surgery and I
am doing extremely well. I believe that I have been given a
gift. When people asked me before the surgery if I was excited,
I would respond that “I was hopeful”. My results have far
exceeded my hopes. My gratitude is boundless.
Dr. Rezak never pushed the idea of DBS on me. He waited
until I came to him. It was time. I remember him telling
me...”Toby, I have nothing left in my bag of tricks that will
help your symptoms”. I think that at that point I went into
shock-I was not prepared for this. I had been doing so well on
my medications, but as I learned, every case is different and the
path of this disease is filled with ups and downs. Unfortunately,
I had run out of “ups”.
This is a long road that I am on and I must have realistic
expectations, but that doesn’t mean that you ever give up. You
just learn how to “TRUST”.
Hope to hear from you soon, Toby
[email protected]
The Rezak Report continued from page 3
For now, delaying levodopa use until it is needed, by
using other medications first (Azilect®, Neupro®,
Mirapex®, Requip® etc.) remains the overall guiding
principle in our effort to forestall motor complications.
If and when more symptomatic benefit is needed, a
longer acting levodopa formulation such as Rytary™
would be desirable.
In moderate to advanced PD, reduced dosing frequency
and more ON time is a highly desirable benefit of
Rytary™, but dyskinesias will probably remain somewhat
problematic.
The timing of the release of Rytary™ onto the market is
unclear as the FDA is still awaiting response to some questions.
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A T O U R N A ME NT TO C HAMP IO N
BY E L I Z A BET H BE R RY
On June 28, 2012, PDRS held its third annual Fight for the Cure fundraiser and Flip Cup
Tournament. The event kicked-off with an outstanding raffle where guests walked away with bigticket items including an Apple IPad, a vacation package, and tickets to all of Chicago’s major
sporting events. Other prizes were claimed throughout the night as guests enjoyed complementary
cocktails and hors d’oeuvres generously provided by the night’s host, Theory Bar and Grill.
Without a doubt the highlight of the evening was the Flip Cup Tournament, a tradition started
in 2011 which met with tremendous success.
Stacey Cohen calling raffle winners
The host committee was pleased to see many new faces in
attendance at this year’s event and happy to welcome back our past supporters. What started
out as a modest cocktail party just three years ago, has blossomed into a truly special night. This
year’s event raised a grand total of $18,325 and undoubtedly helped to raise awareness with over
150 people in attendance.
The host committee extends its warmest gratitude to all those who attended the event and to
those who could not be there but whose kind donations added to the evening’s success. We are
Happy Flip Cup Winners
especially grateful to Cadence Health for the generous support it provided in organizing our
event. We look forward to connecting with future committee members, friends, and donors as we continue to fight for a cure for all
those who suffer from Parkinson’s disease. Our event this year will take place on Thursday, June 27th so please save the date!
Deepest thanks go to the following: Presenting Sponsor-Mr. David Reich & MSRF, Inc., Event Sponsors-Mr. Joel Sorinsky & Theory,
Stacey Cohen & Family, Pediatric Neuropsychology Diagnostic Center, Peroni Italy and TEVA Neuroscience Supporting SponsorThe Giannoulias Family Raffle Prize Donors-AKIN, Ms. Alissa Nowinski, Benefit Boutique, The Berman Family, The Blues Jean Bar,
Brookfield Zoo, Bull & Bear, Charles Ifergan, Chen’s (Koi), Chicago Bears, Chicago Blackhawks, Chicago Bulls, Chicago White Sox,
Chicago Wolves, The Chopping Block, ComedySportz Theater, Dana Hotel & Spa, Paulson Photography, George the Salon, Gibson’s
Restaurant, Half Acre Beer Company, Halo Salon for Men, Haymarket Pub & Brewery, Hub 51, John Albens & Fibre Craft, Ms. Kate
Malham, The Laugh Factory, Legacy Vacation Club, Lettuce Entertain You, Lou Malnati’s, Material Possessions, Merkle’s Bar & Grill,
Music Box Theater, Nate Berkus Associates, Noel Rose Hair Studio, Paris Club, Peggy Notebaert Nature Museum, Picture Us Galleries,
Position-Tech, Public House, Qdoba Mexican Grill, Real Ryder Revolution, RPM Italian, Sebastian Grey Clothier, Mr. Scott Knapp,
Six Flags Great America, Sluggers, Sprinkle’s Cupcakes, Stacey Cohen Interiors, Treasure Island Foods, Turano Baking Co., Uncle
Julio’s, Urban Oasis, VeeV, Vera, Victory Garden’s Theater, Wilson Dow Group, Wines for Humanity and Zipcar.
20 12 GAME D AY
For the seventh straight year Sue Apter and Susan Wellek
chaired a very successful PDRS Game Day on Oct. 12 at
Northmoor Country Club in Highland Park, thanks to the
sponsorship of Jan Ratliff, country club member. 220 attendees
were able to enjoy a lovely afternoon of lunch, camaraderie and
participation in games of Mah Jong, Canasta, Social Bridge and
Sanctioned Duplicate Bridge.
After 7 years as a successful team, Sue Apter and Susan Wellek
are turning over the chairmanship of this event to another
very competent team of PDRS board members, namely Linda
Schwartz, Juliet Plonsker and Jillian Schwartz. Sue and Susan
will remain on the committee as mentor-advisors and will be
actively involved in the planning of the event.
This year Game Day will take
place on Wednesday, October
2nd so please save the date!
Cadence Health Foundation and TEVA Pharmaceuticals
underwrote the event enabling all monies to go directly
to Parkinson’s research. Local merchants and health care
providers donated all raffle prizes and the welcome gifts were
donated, as always, by Shelly’s Hallmark store in Northbrook.
Due to the generosity of these institutions and individuals we
were able to raise over $41,000 for our cause.
Co-Chairs Sue Apter (L) and
Susan Wellek pass the torch
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“ PA R F O R PAR K INSO N’S” E VE NT
B Y T H E H ON . E MI L I O S A N T I
On
July
30,
2012, Northmoor
Country Club, in
Highland Park, was
the setting for the
PDRS annual golf
outing/fundraiser. It
can be said with certainty that this venue provided those
participating with the most positively memorable experience
in the 10 year history of the event. In spite of drought like
weather conditions, the course was beautifully manicured
and provided a fair and enjoyable test for all participants.
The staff, including PGA golf pro Adam Rosuck and
General Manager Jim Cardamone structured and oversaw
the event, leaving very little for our staff to do.
Also, due to our recent affiliation with Cadence Health, who
graciously agreed to underwrite the affair, PDRS was able to
net a sizeable profit.
Last, but certainly not least, I would personally like to thank
all of our participants. Each year you are asked to reach in
your pockets. Although, as a committee we feel that the
event is always presented in a first class fashion, without your
continuing commitment and participation we could never
achieve the level of success attained over the years.
The Outing this year is scheduled for Monday, July 29th,
2013. We would remind those of you who played last year
that Northmoor has 27 holes available to us. It would be
wonderful to necessitate use of all of them! I’m certain each
past participant has a friend or two who would love to spend a
Monday afternoon basking in the beauty and warmth of these
premises. See you all then!
I offer special thanks to Northmoor member and good
friend Bud Greene for supporting our cause by providing his
sponsorship.
D E E P B R A I N S T I MULATIO N: INSIGHTS FRO M A
N E U R O P HYSIO LO GIST
BY MA R K N OLT, PH . D .
Deep brain stimulation (DBS) is a contemporary treatment
for patients with Parkinson’s disease and other movement
disorders. This form of therapy may be recommended to
patients whose symptoms are no longer, or never were,
adequately controlled with standard medical therapy. DBS
involves stimulation through an electrode (essentially a thin
wire) that is placed into a very specific region in the brain.
The electrode is placed during a surgical procedure in which
numerous experts use a variety of techniques to determine
the best location for the individual patient. One key
component of the procedure that may be mysterious to many
patients is the neurophysiological recordings in the operating
room. Although these recordings must be performed while
the patient is awake, the recordings are completely painless
and yield some of the most important information used to
place the DBS electrode.
how these recordings are done and what they tell us. I hope
that after reading more about them below, I will have been
able to “demystify” them for you!
Before these recordings occur, and even prior to the patient
entering the operating room, a CT scan and MRI scan of the
patient’s brain are examined by the team to visualize the area of
interest and define the optimal path to the target. For a patient
with Parkinson’s disease, the target structure in the brain
is almost always the subthalamic nucleus (STN). Although
the planning can be done with a high degree of accuracy
by examining the scans, at CDH we use neurophysiological
recordings during the surgical procedure to refine the
placement of the electrode. We believe this is extremely
important, as the STN is very small and cannot always be seen
unequivocally on the radiological images. Neurophysiological
recordings (also called microelectrode recordings) are done
using very thin electrodes, called microelectrodes, which are
thinner than the DBS electrode. They are made primarily of
insulated tungsten, a very hard metal that is commonly used
in light bulb filaments. Although tungsten is considered to
be one of the hardest metals, these electrodes are very fragile
As a neurophysiologist at CDH, I work with Dr. Rezak and
Dr. Masnyk during deep brain stimulation (DBS) surgeries,
performing these recordings. I have done these recordings for
over 350 DBS electrode placements at over 25 centers across
the country. Most people do not have an understanding for
Deep Brain Stimulation continued on page 8
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Diagnosed with Parkinson’s continued from page 3
A NUTRITIONIST’S
PERSPECTIVE
of the disease. Exercise helps strengthen your body so that it
can fight back against whatever the Parkinson’s throws your
way. People who exercise regularly are more able to manage the
day to day symptoms than those who do not. Other benefits of
exercise include: decreased rigidity and joint stiffness, improved
endurance, improved circulation, better digestion, bowel function
and sleep, enhanced mood and general well-being.
BY MA R C Y KI R S H EN BA U M,
MS , C C N
What you put in your body directly affects how you feel.
Nothing is neutral; the right foods promote vitality, energy
and wellness. The wrong foods promote inflammation,
infection and chronic disease. Our bodies are fine tuned
machines that require the proper fuel for synergy and
balance. A health condition such as Parkinson’s disease
throws you out of balance by forcing your body to work
even harder to finds its equilibrium.
Numerous studies have been conducted on the best type of
exercise, but overall your goal should be to work up to 30
minutes of sustained aerobic exercise at least 3 times a week. Try
to make the activities you choose enjoyable so you look forward
to doing them.
Aerobic Exercise
Aerobic exercise, also known as “cardio”, gets your heart rate
up, your blood pumping and more oxygen to your brain. It also
stimulates your lymphatic system and makes you sweat out
toxins. Examples include treadmill, elliptical machine, rowing
machine, bicycle (stationary bike if you have balance problems)
speed walking and running.
With the multifaceted pathogenesis of PD and its
irreversible damage, the nutritional recommendations,
based on preliminary scientific evidence, may slow the
progression of the disease and provide some symptomatic
relief. To reduce the risk and progression of PD, modifiable
lifestyle factors that decrease inflammation and enhance
antioxidant protection are necessary to consider. Dietary
patterns that include high fruit and vegetable, nuts and
seeds, legumes, and fish (wild caught) with low saturated
animal fat intake are inversely associated with the
risk of PD. Begin by evaluating the foods you eat and
eliminating nutrient-dead processed foods and replacing
them with whole, nutrient-dense foods. Incorporating
any lifestyle changes take time, so begin slowly and
notice how your body responds.
After you have built up some stamina, challenge yourself with
exercises that engage both your mind and your body.
Dancing
Studies have shown ballroom dancing to be one of the best forms
of exercise for PD patients for countless reasons. It forces you to
engage both your body and your brain when learning the steps and
keeping time. It is often a partner exercise, so you get the benefit
of learning to be coordinated with another person. Most people
find the music to be appealing as well, often bringing back good
memories from years past. Some say their symptoms “melt away”
once they hit the dance floor. Have no fear if you have two left feet,
any type of dancing will do. Put on your favorite music, even if you
are alone in your living room, and cut a rug for a half hour every
day. Dancing also does wonders for your mood. If you think about
it, it’s rare to see someone dancing who is not smiling.
Marcy offers a wealth of holistic nutrition knowledge to
her clients. She inspires her clients to make practical and
sustainable changes that work for them by educating and
promoting a healthy lifestyle. To learn more about how you
can incorporate sound nutrition into your life, contact Marcy
at [email protected]; 847-987-1128.
Boxing
Challenge yourself further by adding boxing to your exercise
regimen. Boxing is a high energy work-out and like dancing
it forces you to use your mind and body. Boxing also offers
a healthy alternative to lashing out when you feel frustrated
or overwhelmed by the changes in your health. For more
information, see rocksteadyboxing.org.
SAVE THESE DATES!
Fight for the Cure/Flip Cup Tournament
Thursday, June 27, 2013
“Par for Parkinson’s” Golf Outing
Monday, July 29, 2013
In addition to aerobic exercise, try weight bearing and balance
focused activities like yoga and tai chi. Consider exercise as
important as your medications and commit to an active life.
Game Day
Wednesday, October 2, 2013
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Deep Brain Stimulation continued from page 6
with a tremor, we can
usually detect cells that
are signaling at the same
frequency as the tremor.
since they are extremely thin. In fact, at the tip, they are
thinner than a human hair! These electrodes are mounted to
a device called a microdrive. This microdrive is manipulated
by a small motor that is connected to a system positioned
near the patient in the operating room. This system enables
me to move the microelectrodes and record the activity of
the cells in the patient’s brain. The system is designed such
that the microelectrodes can be moved at very small steps
(approximately 10µM at a time).
Each area of the brain
has a specific pattern
of
communication.
By observing these
patterns as I move the
microelectrodes towards
the STN using the microdrive, I can determine exactly where
the electrodes are in the brain. This information, combined
with the radiological scans, allows the team to place the DBS
electrode in the area of the brain that will be most beneficial
to the patient.
So, what exactly am I recording? These neurophysiological
recordings can be simply thought of as recordings of the
communication between cells, or the “language” of cells. During
the recordings we are actually observing the communication of all
of the cells that are close to the tip of the microelectrode. Of course
there are whole textbooks written on how cells communicate with
one another, but at the most basic level of the cell, it involves the
movement of numerous charged particles into and out of the cell.
This movement of charged particles is amplified thousands of
times buy the recording equipment to achieve a level that we can
see AND hear. Many patients find it fascinating to be listening
to their own brain! To the untrained ear, the recordings resemble
“rain on a tin roof” or “white noise”. However, in patients
I hope this has helped you to have a better idea of what
neurophysiological recordings entail, and how they are used
during the placement of a DBS electrode. If you happen to see
me in the clinic and have questions, please don’t hesitate to ask!
Dr. Mark Nolt is a neurophysiologist and researcher in the
Movement Disorders Center at Central DuPage Hospital.
MI TZVAH P R O J E C T T O H ELP FIND PAR K INSO N’S D ISE ASE CU RE
BY D A N I E L BEN - I S V Y
Last February I became a Bar Mitzvah. A Bar Mitzvah is a traditional ceremony in which
Jewish children become adults in the Jewish community. A Jewish child becomes a Bar
Mitzvah at the age of thirteen. He leads a service in his temple and reads from the Torah.
Only adults can read from the Torah, so when a Jewish child reads from the Torah, it
signifies that he has become an adult in the Jewish community.
A Jewish child also often completes a mitzvah project to become a Bar Mitzvah. A
mitzvah project is any project the child performs to help in their community. Some
common projects are raising money for a charity and volunteering. For my mitzvah
project I ran thirteen 5K races to raise money for the Parkinson’s Disease Research
Society. I picked this project because my grandpa has Parkinson’s disease. One of his
doctors is Dr. Rezak.
Daniel Ben-Isvy racing
for the cure
For each race I ran I asked a different group of people to donate money to my cause. I
sent each of them a letter asking them to donate money and explaining what my mitzvah project was. I then sent the
money I earned from that race to the Parkinson’s Disease Research Society. Once I had collected the money I raised
for the race, I sent thank you letters to everyone who donated.
Following all thirteen races I raised roughly $8,800 for the Parkinson’s Disease Research Society.
After observing my grandpa for several years, I have realized how important it is to find a cure for Parkinson’s disease.
I hope that my small contribution will help find a cure for Parkinson’s disease.
8
www.parkinsonsprogress.org
T R U K E N B R O D FAMILY “E NGLISH C HANNE L”
S WI M F O R PAR K INSO N’S R E SE AR C H
B Y BR I T T T R U KE N BR OD
During the summer of 2011, a former colleague
of mine, Doug McConnell, swam the 20 mile
plus English Channel to raise money and
awareness for ALS (Lou Gehrig’s Disease)
research. Doug is a former college swimmer
whose father passed away from ALS. After 14
hours in cold, choppy water, Doug completed
the Channel and raised a significant amount of
money and attention for ALS research.
In June of 2012, Caroline (age 11), William
(9), Charlie (6) and Allie (5) and I (age not
disclosed) set a goal to swim 80 total miles and
raise as much as we could for the Parkinson
Disease Research Society – my dad’s choice of
charity to support. We reached out to friends and
family, and received support from 30 sponsors.
We swam hard throughout the summer and kept
track of our progress on a large chart outside of
the pool. It was highly gratifying to see the kids
work so hard to accomplish a goal. On several occasions, they
would swim 1 to 2 miles a day in order to stay on pace! In August
2012, we completed the challenge! Our team swam 80 miles and
raised almost $4,000 for Parkinson’s Disease Research Society
with the generous support of our sponsors.
Allie, Caroline, William and Charlie with
their swim trophies
My father, Bill Trukenbrod, was diagnosed
with Parkinson’s disease over a decade ago. Although we have
supported a number of Parkinson’s related charities financially
over the years, I wanted to do something more personal and
tangible. Doug McConnell’s English Channel Swim gave me
an idea!
Over the past several summers, my four children and I have
participated in a summer long “English Channel” swim challenge
at our local pool. The basic concept is to complete the full 20
mile distance of the Channel by swimming pool laps throughout
the summer. My wife, Allison, and I thought that adding a
charity goal to the swim would serve to motivate our kids and
teach them a valuable lesson about helping others.
Although we feel both proud and motivated by accomplishing this
goal, our strongest source of inspiration is my Dad! His strength
of spirit, positive attitude and will to continue his active lifestyle
is truly impressive. Dad has a tremendously supportive group of
friends, family and doctors that prove the substantial benefit of
battling life’s challenges with a strong team behind you!
T H A N K S T O O U R GE NE R O US SUP P O RTE RS
THE PDRS O FFICE RS AN D D IRE CTO RS G R AT E F U L LY A C KN OW L E D G E T H E F OL L OW I N G D ON OR S …
Abbott Labs Employee Giving
Ms. Hope Abels
Ms. Sharon Abrams
Mrs. Joyce Abrams
Ms. Leslie Abramson
Mr. and Mrs. Morton Abt
Mr. and Mrs. Gary Adelman
Mr. Brad Adelman
Ms. Meredith Ahern
Allstate Giving Campaign
Ms. Michelle Anderson
Mr. and Mrs. James Anixter
Ms. Lesley Anixter
Mr. and Mrs. Joseph Annenberg
Mr. and Mrs. Nicholas Anton
Ms. Rena Appel
Ms. Marilyn Appelson
Mr. and Mrs. Robert Applebaum
Mr. and Mrs. John Apter
Mr. and Mrs. David Apter
Mr. and Mrs. Greg Apter
Mr. and Mrs. Kevin Apter
Mr. and Mrs. Steven Apter
Mr. and Mrs. John Apter
Mr. Stuart Arkin
Mr. and Mrs. Daniel Arnold
Mr. and Mrs. Robert Aronson
Mr. and Mrs. Thomas Asbury
Mr. and Mrs. Richard Atlas
Ms. Lindsay Auslander
Mr. and Mrs. Mike Auster
Ms. Amy Averbuch
Mr. and Mrs. Bruce Bachmann
Dr. and Mrs. Carl Backer
Ms. Charlene Baizer
Mr. Robert Baizer
Mr. and Mrs. Charles Barancik
Mr. and Mrs. Gene Barasch
Mr. and Mrs. Harvey Barnett
Ms. Rosemary Bartley
Ms. Corinne Baskin
Ms. Miriam Bass
Mr. and Mrs. Marshall Baum
Mr. and Mrs. William Beanblossom
Mr. and Mrs. Chuck Bechler
Mr. and Mrs. Jim Beck
Mr. and Mrs. Martin Becker
Mr. and Mrs. Scott Becker
Mr. and Mrs. Don Belgrad
Mr. and Mrs. Michael Ben-Isvy
Mr. Daniel Ben-Isvy
Mr. and Mrs. Neil Ben-Isvy
Ms. Jennifer Bensinger
Mr. and Mrs. B. Benton
Mr. Todd Berger
Mr. and Mrs. Elliot Berman
Mr. Arthur M. Berman
Ms. Margot Berman
Mr. and Mrs. Carl Bernardi
Ms. Gail Bernero
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Ms. Elizabeth Berry
Ms. Nancy Pacher Berry
Mr. and Mrs. Bruce Bertucci
Mr. John Beslow
Ms. Iris M. Beyer
Ms. Christine Bickler
Ms. Stephanie Biegel
Dr. and Mrs. Robert Bielinski
Ms. Beth Binder
Mr. Richard Biondi
Mr. and Mrs. Harold Birndorf
Ms. Doreen Bizar
Ms. Shirley Blatt
Mr. and Mrs. George Blinick
Dr. and Mrs. Robert Block
Mr. Leonard Block
Dr. and Mrs. Michael Blum
Mr. Marc Blum
Next Realty LLC
Ms. Ellie Bodner
Ms. Jennifer Boehnel
Boeing Co. Employee Giving
Mr. and Mrs. Bill Borenstein
Ms. Linda Bosach
Mr. and Mrs. Pat Bosco
Mr. and Mrs. Michael Boyd
Ms. Jean Brick
Ms. Marissa Brykman
Ms. Joyce Brodsky
Ms. Helene Brodsky
Mr. and Mrs. John Brodson
Mr. Kenneth Brown
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Ms. Jill Brown
Mr. and Mrs. Lawrence J. Brown
Mr. and Mrs. Louis Bucksbaum
Mr. and Mrs. Alexander Bullock
Mr. and Mrs. Ron Butler
Cadence Health Foundation
Mr. Chris Hensley
Cadence Health Foundation
Ms. Becky Stimson
Cadence Health Foundation
Ms. Holly Kulikowski
Ms. Mimi Cagen
Mr. and Mrs. Charles R. Campbell
Ms. Paula Cappello
Mr. and Mrs. Ron Carani
Mr. and Mrs. Carl Carani
Ms. Bonnie Carmell
Mr. and Mrs. Rodolfo Carmona
Mr. and Mrs. Michael Carreon
Mr. William Cavalier
Mr. and Mrs. Robert Center
Central DuPage Hospital
Ms. Jennifer Biede, Neurosciences
Mr. and Mrs. Norman Chase
Mr. and Mrs. Harold Chizewer
Mr. and Mrs. Thomas Clark
Mr. and Mrs. Mark Coe
Ms. Leslie Cogan
www.parkinsonsprogress.org
Mr. and Mrs. Sheldon Cohen
Ms. Stacey Cohen
Mr. and Mrs. Frank Cohen
Ms. Melanie Cohen
Ms. Patricia Cohn
Ms. Marcia Cole
Mr. and Mrs. Steven Cole
Mr. and Mrs. Robert Colen
Mr. and Mrs. Matthew Comisky
Dana and Laura Connell
Mr. Joe Contaldo
Mr. and Mrs. Douglas Cook
Mrs. Susan Cook
Mr. and Mrs. Carey Cooper
Mr. Mike Cope
Mr. and Mrs. Mike Corn
Mr. Richard Cortesi
Ms. Maryse Costandi
Ms. Elizabeth Cozzi
Mr. and Mrs. Josh Crane
Mr. and Mrs. Steve Crane
Mr. and Mrs. Alan Crane
Mr. Rico D’Amore
Mr. and Mrs. Charles Dawe
Ms. Mary DeGrazia
Mr. and Mrs. Tony DeGrazia
Mr. and Mrs. John Deimel
Mr. Ray Demartini
Ms. Stacey Dembo
Mr. and Mrs. John Di Tomasso
Mr. and Mrs. Dennis Dicks
Ms. Kay Dickson
Mr. Steve Don
Edward Don & Co.
Mr. and Mrs. Robert Don
Mr. Mark Dow
Wilson Dow Group
Mr. Steve Downs
Dr. and Mrs. Harold Dreebin
Mr. and Mrs. Leonard Dubow
Mr. Marty Duda
Ms. Natalie Duell
Ms. Katherine Durham
Mr. and Mrs. Howard Edison
Ms. Martha Egeland
Dr. and Mrs. Byron Eisenstein
Mr. and Mrs. Foster Elliott
Mrs. Alice Ellis
Mr. and Mrs. Howard Emmerman
Ms. Jennifer Esposito
Euromonitor Intl.
Mr. and Mrs. Burton Evans
The Peter Nierman Family
The Gantz Family
The Spinello Family
Ms. Anne Faurot
Ms. Linda Feeney
Mr. Aaron Feldman
Mr. and Mrs. Joel Fenchel
Ms. JoAnn Feucht
Field’s Jeep & BMW
Ms. Judith Filler
Ms. Mary Ann Fine
Dr. Michael Finger
Ms. Deborah Finn & Fam.
Ms. Evelyn Fisher
Mr. and Mrs. Ken Fisher
Mr. and Mrs. Larry Fisher
Mr. and Mrs. John Fix
Mr. and Mrs. Jim Fontaine
Mr. and Mrs. Robert Fowler
Ms. Diane Fox
Mr. and Mrs. Milton Fox, Jr.
Mr. and Mrs. Hubert Frank
Mr. and Mrs. Lee Frank
Mr. and Mrs. Les Frankel
Mr. and Mrs. Michael Freed
Mr. and Mrs. Gerald Freeman
Mr. and Mrs. Adam Freeman
Mr. and Mrs. John Freeman
Mr. and Mrs. Barry Freeman
Ms. Dixie Friedman
Ms. Gillian Friedman
Mr. and Mrs. Howard Friend
Ms. Karen Friesen
Frost, Ruttenberg & Rothblatt
Mr. and Mrs. Teruo Fujii
Mrs. Lois Gallagher
Ms. Carole Gans
Mr. and Mrs. James Gardner
Ms. Stephanie Gardner
Mr. and Mrs. Alan Garland
Mr. and Mrs. Ed Garno, Jr.
Mr. and Mrs. Robert Gassman
Mr. David Gassman
Ms. Willi Gehrig
Mr. and Mrs. Dan Geiger
Mr. and Mrs. Michael Geisser
Mrs. Judith Geleerd Kitzes
Ms. Lila George
Mr. and Mrs. Bob Gerstein
Ms. Anna Giannoulias
Mr. Alexander Giannoulias
Ms. Jane S. Gidwitz
Mrs. Joyce Gidwitz
Ms. Brooke Giovannetti
Mr. and Mrs. Stewart Glass
Mr. and Mrs. Alvin Glatt
Mr. and Mrs. Barry Glazer
Mr. and Mrs. Scott Glazer
Ms. Kim Glazer Goldberg
Mr. and Mrs. Burt Glazov
Mr. and Mrs. Al Glick
Mr. and Mrs. Michael Glickman
Ms. Sunny Gold
Mr. Bob Wolf
Mr. and Mrs. Alvin Goldberg
Mr. and Mrs. Darren Golde
Mr. and Mrs. Terry Goldin
Mr. and Mrs. Glen Goldman
Mr. and Mrs. Michael Goldman
Ms. Judith Goldman
Mr. and Mrs. Donald Goldsmith
Mr. and Mrs. Lee Goldstein
Dr. and Mrs. Bruce Goldstick
Ms. Rita Golub
Ms. Amelia Gonzales
Mr. Howard Goode
Mr. and Mrs. James Goodman
Mr. and Mrs. Elliott Goodman
Mr. and Mrs. Richard Gordon
Ms. Lori Gordon
Mr. and Mrs. Frank Gray, Jr.
Ms. Susan Greenberg
Mr. and Mrs. Hal Greene
Mr. and Mrs. Bud Greene
Mr. Laurence Greenfield
Mr. Gary Greenspan
Mr. and Mrs. Howard Greisdorf
Mr. and Mrs. Herb Grinell
Mr. and Mrs. Robert Grossman
Mr. Adam Grossman
Mr. and Mrs. David Grund
Mr. and Mrs. Fernando Guidarini
Mr. and Mrs. Howard Haas
Mr. and Mrs. Jeremy Hafner
Ms. LyAnne Halverson
Ms. Eve Hamity
Dr. Michael Hampton
Mrs. Sheila Handwerker
Mr. and Mrs. James Hanig
The Helen M. Harrison Foundation
Ms. Marsie Hass
Mr. and Mrs. Roger Haughey
Ms. Lindsay Hearn
Mr. and Mrs. Steven Helfand
Mr. and Mrs. Arnold Heltzer
Ms. Jennifer Herrera
Ms. Phyllis Heyman
Ms. Alanna Higgins
Ms. Ellen Hildebrand
Mr. and Mrs. Eli Hildeshaim
Mr. and Mrs. Neal Hirsch
Mr. and Mrs. Donald Hirsch
Ms. Mari Hirsh
Dr. and Mrs. Marshall Hirshman
Mr. Andrew Hochberg
Next Realty LLC
Mr. and Mrs. Edward Hollander
Mr. and Mrs. Alvin Holtzman
Ms. Erin Horan
Mr. and Mrs. David Horowitz
Mr. and Mrs. Al Horowitz
Mr. and Mrs. Stuart Horwich
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Mr. and Mrs. David Horwitz
Ms. Janet Hoshaw
Mr. Jeane Hough
Dr. and Mrs. Robert Howard
Ms. June Howard
Mr. and Mrs. David Hudachko
Ms. Alicia Hughes
Mr. and Mrs.Jim Humphrey
Ms. Sara Hurwick
IBM Employee Giving
Mr. Michael Ihlenfeldt
Ms. Nicole Incandela
Mr. and Mrs. Dave Ireland
Ireland Heating & Air Conditioning
Ms. Judy Isenberg
Ms. Emily Israel
Mr. Ted Jadwin
Ms. Jacqueline Jaffe
Mr. and Mrs. Robert Jaffee
Ms. Carrie Janura
Ms. Rebecca Javens
Mr. and Mrs. Raymond Jean
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Mr. and Mrs. Steven Joel
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Mr. and Mrs. Alan Kahn
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Ms. Renee Kane
Mr. and Mrs. Steve Kanefsky
Kantor & Apter
Ms. Ina Kantor
Mr. Scott Kantor
Dr. and Mrs. Joel Kaplan
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Ms. Carol Karton
Mr. Ron Katch
Ms. Rachel Katz
Mr. Alex Katz
Mr. and Mrs. Brett Katz
Mr. and Mrs. James Katz
Mr. and Mrs. David Katz
Mr. and Mrs. Marshall Katz
Ms. Etta Katz
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Ms. Patricia Katz
Mr. and Mrs. Stuart Katz
Mr. and Mrs. Abe Katz
Mr. and Mrs. Ralph Katz
Mr. and Mrs. Steven Katz
Ms. Debra Dann Kay
Mr. and Mrs. Herb Kazan
Ms. Sheila Kelin
Mr. and Mrs. Frank Kelly
Mr. and Mrs. Dennis Kerrigan
Mr. and Mrs. Dennis Kessler
Mr. Tom Kilborn
Mr. Greg Kilrea
Mr. and Mrs. Mitchell King
Mr. and Mrs. Jeffrey King
Mr. and Mrs. Chris Kirkos
Mr. and Mrs. David Kirshenbaum Family
Mr. Evan Klee
Liz & David Kleifield
Mr. and Mrs. Arthur Klein
Mr. and Mrs. Bernie Kliska
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Mr. and Mrs. Nathan Knaeble
Mr. and Mrs. Gregory Koblentz
Mr. Jerome Kohn
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Mr. and Mrs. Steven Kolko
Mr. and Mrs. Sherwin Konik
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Mr. and Mrs. Richard Kowalski
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Mrs. Heni Krammer
Mr. and Mrs. Kenneth Krebs
Mr. and Mrs. Rick Kreiter
Mr. Michael Kuczwara, Jr.
Mr. and Mrs. Robert Kupchick
10
9
Mrs. Irene Kuusisto
Mr. and Mrs. Joseph Lachman
Ms. Marybeth Lacy
Geraldine Laff Foundation
Alan Garland, Trustee
Mr. J. Scott Lafferty, Jr.
Ms. Jill Lake
Mr. and Mrs. Alex Lallanilla
Mr. and Mrs. David Lambert
Mr. and Mrs. Harvey Lapin
Mr. and Mrs. Paul Lapping
Mr. Steven Lash
Mr. and Mrs. Burt Lasko
Dr. and Mrs. Alan Lasser
Mr. Mark LaVarre
Tangerine Meeting & Events
Mr. and Mrs. Arnold Learner
Mr. and Mrs. David Lecavalier
Mr. and Mrs. Peter Leeb
Mr. Daniel Leeb
Mr. and Mrs. Paul Leeds
Mr. and Mrs. David Leibman
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Lesser, Lutrey & McGlynn
Mr. and Mrs. Marvin LeVee
Mr. and Mrs. Wayne Levenfeld
Ms. Ivy Levin
Mr. and Mrs. Steve Levin
Mr. and Mrs. Alan Levinson
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Mr. and Mrs. Richard Lewis
Mr. and Mrs. James Lewis
Mr. and Mrs. Robert Lewis
Ms. Karen Lewis
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Mr. and Mrs. Scott Lichtenstein
Ms. Arlene Lieb
Mr. and Mrs. Paul Lieberman
Ms. Eunice Lieberstein
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Mr. and Mrs. Leon Lindenbaum
Lipkin & Higgins
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Ms. Karen Lockman
Ms. Barbette Loevy
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Ms. Andrea Lucca
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Mr. and Mrs. Les Lunsky
Mr. and Mrs. Charles Lutz
Mr. and Mrs. Peter Lutz
Mr. James Lutz
Monday Night Mah Jong Grp.
Mr. and Mrs. Kirk Malcolm
Ms. Kathryn Malham
Ms. Elaine Maller
Ms. Roberta Mallon
Mr. and Mrs. Thomas Mann
Mr. and Mrs. H. George Mann
Mr. and Mrs. Sheldon Mann
Ms. Leah Mann
Mr. and Mrs. John Manthei
Ms. Marcia Maras
Mr. and Mrs. Stephen Marcus
Ms. Lauren Marcus
Dr. and Mrs. Edward Margulies
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Mr. and Mrs. Lee Masover
Vicki & Les Masover
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Mr. and Mrs. Richard Mazursky
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Mazzetta Company
www.parkinsonsprogress.org
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Mr. and Mrs. Jim Styer
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Mr. and Mrs. Mark Telpner
Mr. and Mrs. Frank Thomas
Mr. and Mrs. Richard Thompson
Mr. Calvin Tobin
Mrs. Roz Toizer
Ms. Mary Trier
Triumvera Association
Mr. and Mrs. Stanley Trockman
Mr. and Mrs. Bill Trukenbrod
Mr. and Mrs. Thomas Trukenbrod
Mr. Robert Trukenbrod
Mr. and Mrs. Britt Trukenbrod
“Tuesday Night Out” Bridge Grp.
Dr. and Mrs. Paul Tully
Mr. and Mrs. Patrick Turk
Ms. Lynn Turner
Ms. Courtenay Turner
Mrs. Susan Tyson
Mr. and Mrs. Neal Tyson
Ms. Stella Udell
Mr. and Mrs. James Uhll
Mr. Richard Van Arsdale
Ms. Robyn Vanek
Mr. and Mrs. Andrew Verb
Mr. and Mrs. Mike Victor
Mr. and Mrs. Paul Vinkler
Vizcaya Condo Assn.
Mr. and Mrs. Wally Wallis
Ms. Phyllis Warsaw
Ms. Sharon Weber
Dr. and Mrs. Jeff Weinberg
Mr. and Mrs. Ira Weinberg
Mr. and Mrs. Lester Weinstine
Mr. and Mrs. Allen Weintraub
Jamie Weiss
Mr. Michael Weiss
Mr. and Mrs. Jay Weissler
Mr. and Mrs. Joel Weissman
Mr. and Mrs. Richard L. Wellek
Mr. and Mrs. Jeffrey Wellek
Dr. and Mrs. Mark Wellek
Mr. and Mrs. Andrew Wellek Wolkstein
Mr. and Mrs. Richard Wexler
Ms. Sandra Wexler
Mr. and Mrs. James White
Mrs. Robin Winer
Ms. Helen Winer
Mrs. Faith Winternitz
Mr. and Mrs. Richard Wise
Mr. and Mrs. David Wittenberg
Mr. and Mrs. Richard Wohlner
Mr. and Mrs. Jeffrey Worth
Ms. Jeanne Wurtzinger
Mr. and Mrs. Alan Yaffe
Mr. and Mrs. Joseph Yastrow
Dr. and Mrs. Edward Yastrow
Mr. and Mrs. Jack Yonker
Ms. Ann Youngmann
Mr. and Mrs. Joseph Zaccari
Casey Zacher
Ms. Linda Zack
Mr. and Mrs. Melvyn Zahn
Mr. and Mrs. Michael Zavis
Mr. and Mrs. Joseph Zednik
Dr. and Mrs. Allan Zelinger
Mr. and Mrs. Barry Zipkoff
Mr. and Mrs. Burt Zirin
Mr. Todd Zirlin
Mr. and Mrs. Howard Zirn
Hon. and Mrs. Michael Zissman
Ms. Paige Zivin
Published b y the Parkinson’s Disease Research Society
Eileen Rezak, Editor
Parkinson’s Disease Research Society
0N150 Winfield Rd., Ste. A-2
Winfield, IL 60190
Phone: (630) 933-4384
Email: [email protected]
Officers
Carol A. Santi,
President
Alex Katz,
Executive Vice President
Rachel Katz/Charles Lutz,
Co- Vice Presidents
Mitchell King,
Treasurer
Cacilia Reich Masover,
Secretary
Board Members
David Apter
Sue Apter
Dani Berman
Elliot Berman
Elizabeth Berry
Ronald Butler
Alan Garland
Brett Katz
Adam A. Koss
Daniel Lucca
Jocelyn N. Lutz
Lizzie McAdams
Skippy Mesirow
Howard Naft
Christina Nowinski
Parkinson’s Disease Research Society Board of Directors
Jack B. Orlov
Juliet Plonsker
Steven Plonsker
Michelle Rajfer
Ron Sackheim
Hon. Emilio Santi, retired
Jillian L. Schwartz
Linda S. Schwartz
Lauren Silverman
Marilee J. Upton Spatz
Richard L. Wellek
Susan P. Wellek
Alison N. Yastrow
Medical Advisory Board
Michael Rezak, M.D., Ph.D.,
Medical Director
Stephen G. Waxman, M.D., Ph.D.
PA R K I N S O N ’ S D I S E A S E R E S E A R C H S O C I E T Y
Facing the challenge...Finding the cure
Statements or expressions of opinion appearing herein are those of the authors and not necessarily those of the PDRS and
should not be relied upon as a substitute for seeking individual medical advice.
Designed and printed by Source4, 773-247-4141 • www.source4.com
Parkinson’s Disease Research Society
Central DuPage Hospital
0N150 Winfield Rd., Suite A-2
Winfield, IL 60190
(630) 933-4384