2009 - National Parkinson Foundation

Improving care, Improving lives
ANNUAL
REPORT
2009
About the FOUNDATION
Excellence network,
ounded in 1957,
NPF is a leading 43 leading medical
national organization centers around the
F
“ The mission of the National
Parkinson Foundation (NPF)
is to improve the quality of
Parkinson’s care for this
generation of Parkinson’s
patients through research,
education and outreach. ”
with an extensive
grassroots network of
Centers of Excellence,
chapters and support
groups in the United
States, Canada and
internationally.
Unique among the
national Parkinson’s
organizations, NPF is
the only organization
with a singular focus
on improving the
quality of care in
Parkinson’s disease.
Since 1982, NPF has
funded more than
$150 million in
research, education
and support services.
The core of our efforts
is the NPF Center of
globe that deliver care
to more than 50,000
Parkinson’s patients.
Through this network,
NPF creates a
community of health
care professionals
dedicated to
improving clinical
care in Parkinson’s
disease. In each of
our research,
education and
outreach programs,
NPF promotes our
passionate belief
that the best care
is a comprehensive
approach that
addresses the whole
person and the full
range of symptoms
of the disease.
From the CHAIRMAN
Thank you for your loyal support during very difficult
economic times. You have permitted the National Parkinson
Foundation (NPF) not only to sustain our momentum,
but to build on our strength — improving the lives of our
patients and caregivers, now when they need it most.
We continue to be the leader in improving the quality of
patient care, and we are even more committed to our
mission.
Our 43 Centers of Excellence represent an unmatched, powerful community
of movement disorder clinical practices. Through the centers network, NPF is
implementing a Quality Improvement Initiative (QII), under the leadership of
our President and Chief Executive Officer, Joyce Oberdorf. The QII will create
a clinical research database of 30-50,000 Parkinson’s patients. Every patient
will be tracked and receive the same screening once a year. Equally important,
the centers offer the best and most up-to-date multi-disciplinary approach to
the treatment of Parkinson’s patients.
None of this would be possible without your continued support. Parkinson’s
disease (PD) is the second most common neurodegenerative disease and
the number of individuals affected is growing each year. The causes of most
cases of PD are unknown, although researchers believe it may be a result
of the combined effects of many different genetic and environmental factors.
We are convinced that we may be capable of modifying these factors and
substantially improving the lives of our patients.
We are also grateful for the dedication of our volunteers and the support of
our chapters. On December 13, 2009, our extraordinary Chairman Emeritus,
Nathan Slewett, was honored at the World Federation of Neurology’s XVIII
World Congress on Parkinson’s Disease and Related Disorders. At nearly 97,
he has come to the NPF office virtually every day for the past 50 years. His
recognition also honors NPF — the foundation he has dedicated nearly half
of his life to.
On behalf of all of us at NPF, we express our thanks to you for allowing us
to fulfill our mission of bringing help and hope to the one million people living
with Parkinson’s disease and their families in this country alone.
Warm wishes,
Bernard J. Fogel, MD
Chairman
Leading in EDUCATION
James Trussell
Chief Volunteer Officer,
Northwest Georgia
Parkinson Disease
Association
P
eople with
young-onset
Parkinson’s disease
face a great range
of issues including,
loss of employment,
managing finances,
concern about young
families and social
isolation. Since they
will live decades with
the disease, and may
suffer more severe
treatment-related
motor complications,
early management is
crucial to maintaining
quality of life. NPF,
in partnership with
the American
Parkinson Disease
Association, launched
a series of conferences
for those living with
young-onset PD and
their caregivers. The
first conference was
held in Dallas, Texas on
October 23-24, 2009
with over 200 attendees
and over 900 webcast
participants from 14
countries. Due to the
collaboration and the
live webcast, NPF
tripled the number of
people reached within
the PD community.
“ Months after my diagnosis of
Parkinson’s disease, I attended
a NPF Young Onset Parkinson
Conference (YOPC), and that event
changed my life. I saw that I wasn’t
alone—there were all these people
facing the same challenges and
there was this organization
working for them, giving them
tools and resources to adapt and
go on living despite the hardships.
The National Parkinson
Foundation gave me back hope. ”
Leading in SUPPORT
Irving Layton
President,
South Palm Beach
County Chapter
of NPF, Florida
“ As a NPF chapter leader, it is
personally rewarding when our
community of Parkinson’s patients
come up to me to give thanks for
working on their behalf. Through
the various programs we sponsor,
we are accomplishing our mission
with a sense of pride—to give aid,
comfort and support to those
persons in our community who are
afflicted with Parkinson's disease
and to their caregivers. ”
T
wice each
week, the
National Parkinson
Foundation’s South
Palm Beach County
Chapter in Florida
collaborates with
local community
centers to offer a
“Surf and Turf”
exercise program.
This creative program
combines aqua
therapy with landbased exercise
to promote greater
mobility in Parkinson’s
patients. NPF’s 43
Improving care, Improving lives
4
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affiliated chapters,
made up mostly of
volunteers, and 900
support groups each
continue to expand
their efforts to
connect patients with
quality information,
supportive services
and the local
connections which
are vital for families
affected by
Parkinson’s disease.
ANNUAL REPORT
2009
Leading in QUALITY CARE
NPF Quality
Improvement
Initiative Co-chairs
John Nutt, MD
Andrew Siderowf, MD
Medical Director,
Parkinson’s Disease and
Movement Disorders Center,
University of Pennsylvania
N
PF has launched
the first datadriven quality
improvement
initiative to system-
atically improve care
for every patient
diagnosed with PD.
With a goal of tracking
each patient seen in
every NPF Center of
Excellence (35,00050,000 patients
worldwide), this
initiative is building
the largest clinical
research patient
database in PD.
Our ultimate aim
is to collect data
to compare the
effectiveness of
treatments, provide
a research framework
for testing new
therapies, and create
and share models of
excellent care in realworld clinical settings.
The pilot phase was
completed in November
2009, involving
collection and analysis
of almost 700 patient
records with thousands
more new patients
being added through
2010.
Medical Director,
Parkinson Center of Oregon,
Oregon Health & Science
University
“ The Quality Improvement Initiative
(QII) is a great example of NPF’s
commitment to improve outcomes
of patients with PD. The ultimate
goal of the project is to bring high
quality medical care to all people
living with a PD diagnosis. It
has been exciting to be part of a
successful and rapidly evolving
project that has the potential to
improve the care of all patients
with PD. ”
Leading in COLLABORATION
Monique Giroux, MD
Medical Director,
Booth Gardner
Parkinson’s Care Center,
Seattle
“ The National Parkinson
Foundation Care Consortium
establishes the infrastructure and
support needed for quality care
collaboration. This endeavor will
harness the clinical strengths,
diversity of care, and innovation
already set forth by NPF Care
Centers. By directly impacting
care in the community, we will
promote inclusion and offer hope
to the Parkinson’s community.”
T
he NPF Care
Consortium is
a new initiative to
improve care for
patients in community
clinical settings. The
majority of persons
living with Parkinson’s
disease do not receive
their care at Centers
of Excellence. The
Consortium brings
health professionals
into an interactive
network where best
practices can be
shared with the
Improving care, Improving lives
6
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ultimate goal of
improving clinical
care for all people
with Parkinson’s
disease. Quarterly
webinars provide
valuable updates in
the science of best
care, as well as new
operational strategies
for providing that
care. The vision is
to bring the best
care, everywhere.
ANNUAL REPORT
2009
Leading in RESEARCH
Bastiaan Bloem, MD, PhD
Medical Director, Parkinson Center Nijmegen,
Radboud University, Nijmegen Medical Center,
The Netherlands
F
alls are a
common and
devastating
consequence of
Parkinson’s disease.
Supported by NPF,
researchers at the
Center of Excellence
in the Netherlands are
developing a practice
guideline for falls
prevention to help
clinicians in their
everyday practice.
Furthermore, they are
testing the efficacy
of a multi-factorial
falls prevention
program, as well as
looking at new and
reliable outcome
measures for falls in
daily life. In addition,
researchers at the NPF
Center of Excellence
in Israel are searching
for early biological
markers for future falls
among PD patients
and for intensive
interventional
programs.
Nir Giladi, MD
Chairman of Neurology and Medical
Director, Movement Disorders Unit,
Tel Aviv Sourasky Medical Center, Israel
“ Our research, funded by NPF,
identifies those with PD who have
a higher risk for falls. In order to
impede the cascade of events that
lead to wheelchair use, functional
dependence and falls, we work to
develop and implement protective
interventional programs to delay
or avoid the first or next fall. ”
Honor Roll 2009
The National Parkinson Foundation gratefully acknowledges the following individuals,
corporations, foundations, and organizations who have contributed $1,000 or more
between July 1, 2008 and June 30, 2009. Their giving assists research, education
and outreach initiatives. Thank you for your support.
Gifts of $100,000
and above
Robert B. Sievers
Idabelle H. Mincosky
Nathan Slewett
David L. Arey
Martin L. Solomon
Manuel & Mercedes
Mosteiro
Sara Solomon
Jo Ann Pepper Oreffice
Zelda H. Cushner
Solomon Family
Foundation
Paul F. Oreffice
Corene Griffin
Solvay Pharmaceuticals,
Inc.
Park Foundation, Inc.
The Oreffice Foundation
Medtronic Foundation
Elizabeth Miedema
Parkinson's Unity Walk
Ruth Putney
Stanley Richards
Gifts of $50,000
to $99,999
The Applebaum
Foundation, Inc.
South Palm Beach County
Chapter of NPF
Parkinson Association
of Minnesota
Stearns Weaver Miller
Weissler Alhadeff &
Sitterson, PA
Betty J. Rasmussen
Ruby Stevens
Rollin M. Gerstacker
Foundation
Gifts of $20,000
to $49,999
Janet M. Bil
Daniel D. Cantor
Boehringer Ingelheim
Pharmaceuticals, Inc.
The Parkinson Alliance,
Inc.
Thelma L. De Vorss
Ruth N. Downes
Violet Rubin
Alan M. Slewett
Teva Neuroscience, Inc.
Nina Varley
Braman Family
Foundation, Inc.
Enzymatic Therapy, Inc.
Annette R. Carlo
Margaret H. Hendrick
Decade Charitable Lead
Annuity Trust
Ipsen Pharmaceuticals,
Inc.
The Don A. Hunziker
Memorial Foundation, Inc.
Edythe Kay-Marsa &
William Marsa
Lucila I. Gaetke
Pauline F. Krull
The Braeside Foundation
The Greenburg-May
Foundation, Inc.
Jerry M. Lindzon
Betty E. & J. Howard
Burns
Donald LeRoy
Miriam Odess
Ruby Q. Lokensgard
Michael R. Lucidi
Gifts of $10,000
to $19,999
The Ame Foundation, Inc.
Stephen & Mary Birch
Foundation, Inc.
Irene V. Bondy
W. G. Christianson
Foundation
Hazel Meyers
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ANNUAL REPORT
2009
Honor Roll 2009
Kari & Richard W. Clark
Dolores M. Plaster
Raymond C. Baccala
Robert & Joanne Crown
Income Charitable Fund
Norman Rothman
Isabel Bader
LaDoris Shepard
Stewart Bainum
CSRA Parkinson Suppport
Group
Betty June Simonson
Enrique J. Sosa
Dexter F. & Dorothy H.
Baker Foundation
Southwest Florida
Community Foundation
Eugene M. Bane
Charitable Trust
Senator Paul B.
Steinberg
William Banholzer
The Dow Chemical
Company Foundation
Robert P. & Linda Fetch
The Five Millers Family
Foundation, Inc.
Bernice Waldbaum
Florence & Paul
Banikiotes
The Dr. Jack Widrich
Foundation, Inc.
Bank of America United
Way Campaign
Wisconsin Parkinson
Association
Bank of America, NA
Bernard J. Fogel
Forest Research Institute,
Inc.
Bob Hope Charitable
Fund
Max Gruber Foundation
Arla G. Guild
IBM Corporation
Employee Services Center
Gifts of
$1,000 to $9,999
Barcelo Crestline Corp.
Barnard Family
Foundation
Clay Barr
Ailene Bartlett
Abbott Laboratories
Employee Giving
Campaign
John E. & Nellie J. Bastien
Memorial Foundation
Jeani Adams
Ben & Millicent Bauer
E. Richard Alhadeff
Beito Foundation
Allstate Giving Campaign
Karen Ambrose
Bel-Fran Charitable
Foundation
America's Charities
Doris Benefiel
Dennis Anderson
Moises Berezdivin
Harold & Kathleen
Anderson
Michael Beriss
Peter Bernstein
Novartis Pharmaceuticals
Corporation
Joe H. Anderson
David M. Bernstein
Anderson Kill & Olick, PC
Lisa D. Bertani
Office Depot Foundation
Anonymous
David H. Bescherer
Kathleen V. Orr
Robert & Kathleen
Appenzeller
Martha Bickley
Beulah Mae JonesMitchell
Andrew J. Kniffin
Phyllis M. Lewis
Marian S. & Frederic T.
McAuslan Endowment
Fund
Medical College of
Georgia
MCG Health, Inc.
Beatrix Padway
Parkinson Association of
South Dakota
Martin Ardman
The Parkinson Council
Ashland Foundation
David & Natalie Arpi
Janice K. Binger
Stephen Bittel
Beverly Blank Perry
Foundation
Honor Roll 2009
Delouri Farms, Inc.
Blank Charitable
Foundation, Inc.
Chevron Humankind
Employee Funds
Elaine & Phillip Bloom
Family Supporting
Foundation, Inc.
Chinowth Charitable Lead
Trust
Margaret E. Bloomfield
Citibank
Benjamin C. Bohr
Douglas R. Clovis
Margot W. Booth
Armando M. Codina
Amy Borner
John W. Coffey
Scott Boxer
Bruce D. Cohen
Dennis Braziel
Ted Coleman
Donald Brennan
Shirley Colomb
Gerald F. Britt
Lois Brounell
Thomas & Barbara
Conroy
Thomas Bruder
Janet L. Cooke
Bryan Industrial
Properties, Inc.
Katherine L. Cooley
Lance Darrell Crain
Aileen Bunney
Judith Crown Craver
Marshall R. Burack
CREDO Mobile
Burgess Snyder
Industries, Inc.
The Bill & Helen Crowder
Foundation
Scott Campbell
Mint Cardwell
CSX Good Government
Fund Pacmatch
Dan & Jeannine Eckles
Ruth Chloe Cargille
Candace Cummings
Joseph E. Edell
Gary Caris
James Cundiff
Ralph & Barbara Edwards
Family Foundation
Del R. Carnes
Phillip Daluge
Carmen Y. Cartaya
Sybil W. Darley
Harry Wayne Casey
Mary Ellen Elias
Hope Cassano
The Daus Family
Foundation
Malcolm G. Deacon
Evelyn M. Ellis
Catch The Cure
Cerberus Capital
Management, LP
Kathryn M. Deacon
George Eltinge Charitable
Trust
Craig E. & Tammi Chalfie
DEARS Foundation, Inc.
Chattanooga Shooting
Supplies, Inc.
DeFreitas Family
Charitable Gift Fund
Anthony Demos
Charles & Wanda Denny
Willa Ruth Deveny
Karen Christofferson
Robert & Michelle Diener
Rustem Diker
Michael J. Direen
Alan & Elizabeth Direen
Donor Care Center, Inc.
Malcolm Dorman
Robert C. Dorn
Barbara Dorsch
Foundation
James Draddy
Mark Duffy
T. K. Duggan
Paul Dunn
Seth & Bonnie Dunn
Eagan Family Foundation,
Inc.
Sandra L. Earley
Frances Eklund
Charles Eldridge
Morris Deakter
Kathryn Ernst
Scott Eston
Improving care, Improving lives
Robert & Janet Ettleman
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ANNUAL REPORT
2009
Honor Roll 2009
Hawaii Parkinson
Association
Ross Evans
Philip & Judith Gage
Frank Evarone
Brian D. Galvin
Adele J. & Paul Everett
Richard Heise, Sr.
Robert S. & Patti N. Fabris
Gap Foundation Gift
Match Program
Enrique Falla
Robert Gathman
Robert P. Herzog
Jeremiah Farrell
Carl & Esther Gerstacker
Fund
Albert & Marion Hess
James Gillis
Matthew D. Heyman
Global Impact
Donald R. & Marilyn
Hibbert
Betty Fedler
Steven & Donna Feig
Kenna Feis
Elaine A. Fellowes
Vincent Ferraro
Arlene & Arnold Goldstein
Family Foundation
R. Henneberger
Carl Hewitt
William Hicks
Stacie Ferrentino
Dr. Moses & Beatrice
Goodman Fund
Guy & Jan Ferris
Stacey Goodman
Mary Jo Ferris
Gerald B. Goodman
Jane Feldman Fields
Rhoda Goodman
The Fisher Family
Foundation
Seth & Mary Ann Gottlieb
Christopher & Angela
Holstege
Ann Graf
Emmett Hood
Frederick M. & Katherine
Grafton
Claire Hopkins
Creighton Hoffman
Harvey E. Hohl
Joanne Holm
Robert W. Holmes
Jim Fisher
Loretta B. Fitzgerald
Alanson B. Houghton, II
Rudolph & Hilda U.
Forchheimer Foundation,
Inc.
Granada Hills Community
Hospital Foundation
Harriet Ford Dickenson
Foundation
Dennis Grant
Benjamin C. & Jessica
Hoyer
Frances R. Granlund
I Do Foundation
Greenberg Traurig
Joseph M. & Bonnie
Forrester
In Step Mobility Products
Corp.
James H. Grew
E. Sterling Ingwalson
Jim & Julia Fortmuller
Jack Guthrie
Richard & Katherine Irving
Moustapha & Ann Fostock
Jerry Haar
Margaret Claar Jackson
George L. Foti
Ruth A. Hagestuen
George Jamieson
Les & Joyce Frankel
Jeffrey C. Hammes
Mary B. Jensen
Curt & Nancy Freed
Ruth Harms
Fern I. Jewell
Ronald M. Friedman
Rodney W. Harrell
Dave Johnson
Cynthia E. Fruchtman
Jack Harter
James A. Frye
Hawaii Community
Foundation
Brereton & Elizabeth
Jones
Gabooney Foundation
Sally Jones
Honor Roll 2009
Joanne V. Kacin
L & M Charitable
Foundation, Inc.
Gabriel Kain
Louise Labonte
Gustaf Westfeldt
McIlhenny Family
Foundation
Esther Lam
Tim McKay
Sue Kamp
Robert L. Lambert
Charles H. McPherson
Jack Kay
Michael L. Landa
Medtronic, Inc.
Keenan Antiques
Robert & Betty Keil
Lori J. Launhardt
Memorial Medical Center
Radiology
John Keizer
Lawrence Livermore
National Laboratory
John & Helen Mendel
Dorothy Le Sueur
Kenneth & Laura Meredith
Stephen & Nina Joyce
William & Judy Kerler
Jules A. Kernan Memorial
Janet Lee
Merrill Lynch
Kingdor National
Parkinson Foundation
Sylvia Lee
Merriman Family
Foundation
Lorens & Mabel Kingstad
Rita A. Lehnert
Elmer Kinnamon
Rocio Leon
Microsoft Giving
Campaign Program
Bob & Nadine Kirkpatrick
Monica Lercher
Melonie Miles
Sam W. Klein Charitable
Foundation
Lucille Lerman
Gail & Robert Milhous
Bruce & Janice Miller
Hazel Knighton
Francis & Gertrude Levett
Foundation
Michael Kolodny
Phyllis & Mike Levin
Michael I. Korn
Richard & Margaret Linnell
Korzeniewski Family
Foundation
Living History Centre
Fund
Mirken Foundation
M. Phillip Lorber
Annette Molinaro
Daniel Kosednar
Roger L. Kotch
Hugh & Sandy Lowenstein
Daniel & Barbara
Montague
John W. Kozyak
Paul & Kathy Lubbers
Victor & Nancy Krakower
Timothy G. MacDonald
Jeremy Kramer
Matt & Kristin Maguire
Matthew I. Kramer & Anna
Genet
Joanne Maio-Spruth
Morrison, Brown, Argiz &
Farra, LLP
David Mannheim
Motorola
Harold P. & Betty Kravitz
Alex & Juliet Martins
Steven D. Krohn
Joan S. Mathews
Mt. Vernon Knights of
Columbus Club, Inc.
Jackie Kropman
Joan C. May
Rick Muenyong
John Kuehn
Mike McBath
John & Marilyn Murbach
Barbara C. Kyse
Sylvia McCreary
Bob & Loek Neimeth
Pollie McFarland
Victor Nelson
Mike Miller
Larry Miller
Miller Realty Associates
Walter Morales
Morgan Stanley
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ANNUAL REPORT
2009
Honor Roll 2009
New River
Communications
Jeanne Pitblado
Regina M. Rubenstein
Gail Polensky
New York Community
Trust
Barbara Polster
Martha & Max Rubinstein
Family Foundation
Elliott & Fayga Press
M. Jacki & Jim Rupert
Peter Pryor
Thomas A. Ryan
PSC Automotive Group
LLC
Robert J. Samuelson
Ann-Mari Nordgren
Jean F. Norfleet
Lawrence Puckett
Isabel Savanuck
Northeast Kansas
Parkinson Association
RACES2RUN
Donna Scanlan
Annette Ragosta
Philip Scaturro
The Neil & Anna
Rasmussen Foundation
Herman & Doris Schecter
Katherine A. Odorow
Deborah L. O'Kain
Leonard & Faye Redlich
Joanne Okuda
Fenja Reiss
Schwab Fund For
Charitable Giving
Michael S. & Leslie Okun
George Reiss
W. James Orovitz
Travy Remert
Marie Otsuka
Richard Family
Foundation, Inc.
Martin & Audrey Schwartz
Parkinson Association
of Northern California
Virginia Richert
Harriette Secrest
Rochelle Richilson
Ronald Seiden
Parkinson's Resources
of Oregon
Richard Riddell
Martha S. Riefstahl
Sensient Technologies
Foundation
Ruth F. Riley
Amy & Mitchell Shea
Bernard Rittenberg
Barbara Sherman
RLJ Development
S. Irving & Anne Sherr
Tommy Roberts, II
Sheskey Family
Foundation
Robert & Peggy Noell
Robert Nolan
Balvinder Sangha
Bill Nygren
Christie Pargeter
Parkinson's Support
Group of Syracuse New
York, Inc.
Parkinson's Support
Group of Upstate NY, Inc.
PatientsLikeMe, Inc.
Edward P. Pazicky
Penn, Schoen & Berland
Assoc., Inc.
Peoplefit Health & Fitness
David Pepper
Isabel Perez
Ed & Kay Peterson
Lincoln N. Pinsky
Hugh K. Schilling
Barry K. Schwartz Family
Foundation
Elizabeth Scrivner
Joelle G. Rogers
Mace Siegel
Gwen Rose
Michael P. Rose
Sigma Alpha Iota Gamma
Epsilon Chapter
Sandra Rosenbaum
Sara Lance Sills
Robert Rosenberg
Andrew M. & Margaret
Silton
The Roth Fund –
A New York Corp.
Michael Roth
Virginia C. Simmons
Eric Simonson
Honor Roll 2009
Aston John Simpson
The Medical Center Aurora
Robert D. Westfall
Edward W. Smith Jr.
Foundation
The Parkinson Association
of Greater Daytona Beach
Jessica White
Paul & Annette Smith
Raymond Thola
White Lodging Services
Corp.
Keith & Joann Smith
Norman & Pam Thompson
Kathy & Peter Wiedemer
Judy A. Smith
Thurmont Middle School
James Williamson
Robert G. Smith
Sophia Tomich
Cyril Williamson
Rita Soffer & Hal Leeds
Monte & Ruthellen Toole
Lowell Williamson
Walter R. Somerville, Jr.
Harley Tropin
Anthony L. Wilner
Fritz Sperling
Truist
St. Jude Medical
Trukenbrod Family
Foundation
J.R. & M.J. Wilson
Foundation
State of Florida
Department of Financial
Services
Barbara V. Wilson
Peter Tsivis
Wiseheart Foundation, Inc.
Nancy Turner
Scott Witt
Stax Limited
Mpho Tutu
David M. Workman
The Judy & Michael
Steinhardt Foundation
Ueberroth Family
Foundation
Phyllis I. Wormwood Fund
Mark S. Stephenoff
Marion Wyatt
Sub Pop Records
University of Miami
Leonard M. Miller School
of Medicine
Barbara Vaughn
Philip & Eileen Youtie
Sugar Creek Scrap, Inc.
Nancy Vermeer
Zallea Foundation
Suncoast Community
Foundation, Inc.
Veteto Foundation
Carl Zirkle
W. S. Scharff Family
Foundation
Alan L. Zirkle
Wagner-Braunsberg
Family Foundation, Inc.
Donna Zmolek
Ryan Strayhorn
Sunsplash Events, Inc.
Franklin Surnamer
Swartz Foundation
Swimmer Family
Foundation
Nancy Giese Sygulla
Milton & Miriam
Waldbaum Family
Foundation
Hope F. Syverson
Steven Weber
S. Jerome & Judith
Tamkin
Will K. Weinstein
Richard Wurzburger
Maurine A. Yonke
Zissu Family Foundation
James & Sally Zukerkorn
Foundation
Donald & Lynn Zucker
Leo Zucker
Alan Weintraub
Stanley Tate
Melvin & Carol Taub
Wells Fargo Insurance
Services of NY, Inc.
John R. Taylor
John West
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ANNUAL REPORT
2009
National Parkinson Foundation
LEGACY SOCIETY
Legacy Society members are a select group of donors who have recognized the
Foundation in their wills, trusts, estates and other planned gifts. Their generosity
and forethought will help thousands of Parkinson’s patients live better lives in the
years to come. We welcome the following Legacy Society members:
Eugene M. Bane Charitable Trust
Anna M. Nalbandian
A. Jeffrey Barash
The Oreffice Foundation
Virginia C. Barrett
Ben & Sue Berkowitz
The Vincent N. & Ruth A. Orfield
Charitable Fund of the Lutheran
Community Foundation
Chinowth Charitable Lead Trust
Winston & Bobbie Pease
Kari & Richard W. Clark
Eva Pierce
Robert A. M. Coppenrath
Kim & Susan Schrotenboer
Esther Danielson
Alan M. Slewett
Maurice and Gertrude Finkle
Nathan Slewett
Edward D. Jervey
Sheila Slewett
Heinrich Kolbel
Sally & Robert Webb
Marjorie Korach
Michael L. &
Antoinette H. Wilkerson
Erna Mayer
Marian S. & Frederic T. McAuslan
Endowment Fund
Kimrey D. & Beverly A. Newlin
Karen Moschetto & Janice Raspen
Freeman A. Wolfe
National Parkinson Foundation
COMMUNITY FUNDRAISERS
Every year, thousands of people participate in community fundraisers to increase
awareness of Parkinson’s disease and raise funds for the National Parkinson
Foundation. We would like to extend our sincerest gratitude for their creativity,
energy and commitment:
Anderson Kill & Olick, PC
Opus Creative & Portland's Vital Signs
Anne Joyce Memorial Foundation
Lisette Otero
Belmont Village Assisted Living
Peninsula Cardiology Associates, PA
Bert Blyleven
Raytheon Company
Maureen Caswell
Roanoke Orthopaedic Center
City of Littleton, CO
Roy Roden
The Curchin Group, Inc.
RSM McGladrey, Inc.
Mark Denzer
Sarah Schramm
Seth Dunn and Ryan Takii
Kathryn Seidenstein
Joseph Forrester
Sigma Alpha Iota
The Gallery Collection
The Society of Friendly Fellows
Great River Medical Center
Sara Solomon
G.R. Martin Elementary School
Ryan Strayhorn
Katie Houghton
Thurmont Middle School
Kings Point Bingo Committee
Kristen Wheatley
Thomas Kraus
Mary Ann Kelly MacDonald
Improving care, Improving lives
16
|
ANNUAL REPORT
2009
Financial HIGHLIGHTS FISCAL YEAR 2008-2009
2008-2009 | Expenses by Category
As illustrated below, the National Parkinson Foundation directed 76% of its 2008-2009 spending
on mission-related activities and 24% on fundraising and management/general combined.
Management & General
$
661,328 | 6%
$
Patient Care Services
$
4,324,524 | 42%
Fundraising
1,818,493 | 18%
Total
Program Services:
$
7,804,586
Public Education
1,449,082 | 14%
$
Total Expenses:
$
10,284,407
Research
2,030,980 | 20%
$
2008-2009 | Revenues by Category
Excluding investments, revenues were $ 8.0 million.
Including investments, revenues were $ 6.4 million.
Private & Corporate
$
5,342,143 | 83%
Legacies & Bequests
$
1,833,898 | 28%
Interest income
$
516,271 | 8%
Special Events
305,238 | 5%
$
Realized Gain / (Loss)
on Investments
($ 1,561,405) | -24%
Total Year-End Assets |
$
15,816,350
Board of DIRECTORS
The National Parkinson Foundation is privileged to have an outstanding and
dedicated group of volunteers who generously donate their time and talents
by serving on the NPF Board of Directors. Without their selfless efforts, the
work of the Foundation would not be possible.
Bernard J. Fogel, MD*
Chairman
Nathan Slewett, Esq.*
Chairman Emeritus
E. Richard Alhadeff, Esq.*
Vice Chairman
Harold P. Kravitz, Esq.*
President Emeritus
Daniel Arty, CPA*
Treasurer
John W. Kozyak, Esq.*
Secretary
A. Jeffrey Barash, Esq.
Marshall R. Burack, Esq.
Carmen Y. Cartaya, Esq.*
Edythe Kay-Marsa*
Honorable Shelley J. Kravitz
Paul F. Oreffice*
W. James Orovitz*
Edward P. Pazicky
Jo Ann Pepper Oreffice
Alan M. Slewett
Martin L. Solomon*
Enrique J. Sosa*
Senator Paul B. Steinberg, Esq.
Robert H. Traurig, Esq.
Bruce Wisnicki
*Member of the Executive Committee
Senior PROFESSIONALS
Joyce A. Oberdorf
Ariel Y. Deutch, PhD
President and
Chief Executive Officer
Chair, Clinical & Scientific
Advisory Board
Michael S. Okun, MD
National Medical Director
Improving care, Improving lives
18
|
ANNUAL REPORT
2009
1501 N.W. 9th Avenue
Bob Hope Road
Miami, FL 33136-1494
800.327.4545
www.parkinson.org