A Guide to Northern California Resources for Individuals with Spinal

Transcription

Spinal Cord InjuryFor Your Information
SCI-FYI
A Guide to Northern
California Resources
for Individuals with
Spinal Cord Injury
2nd Edition
Driving
Educa
t
ion
Finances
Health
Internet
Legal
Pa
Publ renting
icatio
Recreat ns
ion
Res
ear
ch
Sexuality
Travel
Vocational
The Rehabilitation Research Center
for Spinal Cord Injury,
Santa Clara Valley Medical Center
So Many Resources,
Its Scary!
Spinal Cord Injury
For Your Information
(SCI-FYI)
2ND Edition
A Guide to Northern California Resources
for Individuals with Spinal Cord Injury
The Rehabilitation Research Center for TBI & SCI
San Jose, CA
Copyright © 2001 Rehabilitation Research Center for TBI & SCI
Introduction
Welcome to the SCI-FYI II, the second edition of the SCI-FYI (Spinal Cord Injury – For your
Information: A Guide to Resources for Individuals with SCI). The first edition was completed in
February, 1997 and recently revised in January, 2001.
The SCI-FYI is a comprehensive resource guide intended for anyone in Santa Clara Valley needing information on services related to spinal cord injury – from the rehab professional looking
for services to help a client, to the individual with a spinal cord injury seeking to improve his or
her personal situation. As stated in the previous edition of the SCI-FYI, and as with any directory
of community agencies, it will need updating by the time it is published, but the majority of
information should remain current and valuable for those seeking resources. All of the agencies
listed in the SCI-FYI are also included in the Appendix to help locate information quickly.
The SCI-FYI was compiled primarily from information in the Resource Center at the
Rehabilitation Research Center for TBI and SCI, and continues to include primarily local (Northern
California) resources. However, state and national resources that may be of particular importance
to individuals with SCI are also included. We do not endorse any of the resources nor make
any guarantees regarding the information and services included in this directory.
We hope you find that the SCI-FYI meets your needs for a resource that provides information on
the range of services for individuals with spinal cord injuries in the Santa Clara Valley area. If you
have potential additions or deletions for the SCI-FYI, or have any suggestions for the resource
guide, please write, FAX, telephone or e-mail me at the address or phone number below. We
hope that future editions of the SCI-FYI will continue to assist you in your efforts to improve the
lives of individuals with spinal cord injuries and their families.
The SCI-FYI is available free and in its entirety online at <www.tbi-sci.org/scifyi>.
Debra L. Burdsall, MPH, OTR
SCI-FYI Editor
The Northern California Regional Spinal Cord Injury Model System of Care
Rehabilitation Research Center for TBI and SCI
950 S. Bascom Ave., Suite 2011
San Jose, CA 95128
Phone:
408/295-9896 Ext. 24
FAX:
408/295-9913
Toll free: 800/352-1956
e-mail:
[email protected]
(Funded by Grant #H133N50003 from the U.S. Department of Education,
Office of Special Education and Rehabilitative Services,
National Institute on Disability and Rehabilitation Research.
Spinal Cord Injury – For Your Information
i
Acknowledgments
We would like to take this opportunity to acknowledge all of the individuals whose contributions helped make this valuable resource a reality.
Christin Corelis spent endless hours working on the first edition of the SCI-FYI - contacting agencies, obtaining information, and word processing. She started with a filing cabinet full of information, created a layout for the resource guide, collected and organized information, and saw the
project through into its final stages.
The revision of this resource guide would not have been possible without the hard work and
dedication of Sherri Rogers who spent endless hours on the phone contacting the agencies and
verifying information.
Jerry Wright, Administrator for the Rehabilitation Research Center for TBI and SCI, was responsible for the layout, design, and indexing of the revised SCI-FYI.
John Hatten was a co-worker at the Traumatic Brain Injury Project and editor of the third and
fourth editions of the Traumatic Brain Injury Resource Directory (TBIRD). John’s outstanding work
on the TBIRD provided us with a working model for the SCI-FYI, and made the seemingly insurmountable task of compiling such a guide possible in the first place.
Diana Harrison from Therapeutic Recreation at Santa Clara Valley Medical Center provided thorough and valuable information on recreation, leisure and transportation resources in the original
version of the SCI-FYI.
This resource guide was peer reviewed by Tamara Bushnik, PhD, Mary Lou Gustafson, RN, BSN and
Kazuko Shem, MD. The time and effort they put forth to give valuable input is much appreciated.
The work on the SCI-FYI was made possible through funding from the U.S. Department of
Education, Office of Special Education and Rehabilitative Services, National Institute on Disability
and Rehabilitation Research, Grant #H133N50003.
And lastly, those of you who provided us with updated and accurate information should be
acknowledged for your contributions to this SCI Resource Guide and, more importantly, for
enriching the lives of individuals with spinal cord injury.
iii
Table of Contents
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .i
Acknowledgments . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .ii
Table of Contents . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .v
How to Use this Directory . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .vii
Top Ten Resource List . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .ix
1. Alcohol and Chemical Dependency Agencies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .1-1
2. Assistive Technology Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .2-1
3. Attendant Care Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .3-1
4. Consumer Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .4-1
5. Crisis Intervention, Counseling and Mental Health Agencies . . . . . . . . . . . . . . . . . . . .5-1
6. Disability Related Organizations and SCI Associations . . . . . . . . . . . . . . . . . . . . . . . . . .6-1
7. Driving Evaluation and Equipment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .7-1
8. Durable Medical Equipment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .8-1
9. Education Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .9-1
10. Financial Aid and Assistance . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .10-1
11. Health Related Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .11-1
12. Housing Agencies and Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .12-1
13. Independent Living . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .13-1
14. Legal and Advocacy Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .14-1
15. Parenting and Family Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .15-1
16. Recreation, Leisure and Entertainment Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .16-1
17. Regeneration and Curative Research . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .17-1
18. Research and Training Organizations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .18-1
19. Resource Directories/Services and Information Resources . . . . . . . . . . . . . . . . . . . . . .19-1
20. Resources for Special Populations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .20-1
21. SCI Internet Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .21-1
22. SCI Publications . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .22-1
23. Sexuality and Fertility Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .23-1
24. Support Groups . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .24-1
25. Transportation and Travel . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .25-1
26. Vocational/Prevocational Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .26-1
A. Index of Agencies/Facilities
v
How to use this directory
Finding information
•Start with the Table of Contents.
•See if you can find the topic that you are interested in.
•Look through the chapter to see if there is a resource that can help you.
•If you find one, you may want to attach a post-it tab so that you can find the page later.
•Write down all of the information that you will need to make your phone call:
agency name, telephone number, name of contact person.
You may also look up resources in the Index. You can find them listed by their name, and also by
the city they are located in (handy if you have issues with transportation).
If you are unable to find a resource that will help you in this directory, a good first step would be
to call your local Independent Living Center (Chapter 13). They will have a good idea of what is
available in your area. A second step would be to call or email us (Rehabilitation Research Center
for TBI & SCI). We have a SCI resource specialist who may be able to help. Call us at 408/295-9896
extension 24, or email us at [email protected]
Preparation for making a phone call
When you are making a phone call be sure to prepare in advance so that you have all of the
information in front of you and you have paper to write down the information you receive.
Before you call, it is very important to know what you want. You will be far more successful if you
can make a specific request rather than just asking for “help”.
Making the call
Introduce yourself and a give a brief description of your situation. Ask about the services that
they provide. The most important point is to remember to NOT GIVE UP at the first sign of resistance. Sometimes people either don’t understand your request or are not sure how they can help
you. Sometimes you may need to explain your request in several different ways. Many of the
agencies/individuals listed in this guide do not work only with individuals with spinal cord
injuries. You may need to describe your issues and/or problems. Sometimes an agency may not
be able to help you, but the person you are talking with can make other suggestions. You will
also find that some of the services are no longer offered, or the agency is no longer in business.
Documenting the call
You will definitely want to write down:
•Who you talked with.
•Can they help?
•Are you supposed to call back, or do something else to follow-up?
•Did they give you other suggestions?
vii
The SCI-FYI Top Ten List
The Top Ten List is a new addition to the SCI-FYI. Here are the most useful and most used
resources within the SCI-FYI. These are the resources that we use every week to answer requests
emailed to us from around the globe.
Compiled at the home office in San Jose, California, here are the SCI-FYI’s top ten resources.
Chapter(s)
1. Spinal Cord Injury Information Network (UAB)
Website: <www.spinalcord.uab.edu>
• Excellent resource - very useful
• Can access 18 fact sheets with information on a
wide variety of topics relevant to SCI. Some fact
sheets are available in Spanish
2. Listing of SCI Self-Care Manuals
• Six self-care/patient education manuals that are
excellent resources for information on bowel,
bladder, and skin care, how the body’s systems
are affected by SCI, and psychosocial issues
• Great tool to use in training a personal care assistant
3. Spinewire Website
Website: <www.spinewire.com>
• Outstanding website developed exclusively
for the SCI community
• Features many current articles, SCI related news
pieces, including research related news
4. A Guide and Resource Directory to Male Fertility
Following Spinal Cord Injury/Dysfunction (Booklet)
Maria J. Amador, BSN, CRRN, Charles M. Lynne, MD,
Nancy L. Brackett, PhD, HCLD
Miami Project to Cure Paralysis
• An excellent comprehensive resource guide to
current and reliable information on male fertility
following SCI
• Available free of charge
9, 21, 22
3, 9
17, 21
23
ix
SCI-FYI’s Top Ten List
Chapter(s)
5. Through the Looking Glasss
Berkeley, CA
Website: <www.lookingglass.org>
• Serves families in which one or more members,
whether parent or child, has a disability or medical issue
• Clinical and supportive services, training and research
15
6. Silicon Valley Independent Living Center
San Jose, CA
Website: <www.svilc.org>
• Personal care assistant recruitment and referral;
training in the management of personal care assistants
• Advocacy and legal services
• Information and referral regarding available and
accessible housing
• Counseling, individual and group support
• Independent living skills
• Vocational services
• Residential training program
3, 5, 6, 12,
13, 14, 16, 26
7. National Spinal Cord Injury Association
Silver Spring, MD
Website: <www.spinalcord.org>
• Resource Center
• SCI Life magazine
• In Touch with Kids Network for children with SCI
8. Medline - PubMed, Internet Grateful Med
Website: <www.nlm.nih.gov/databases/freemedl.html>
• The National Library of Medicine provides two free
systems to search medical topics in the MEDLINE database
• About 11 million references and abstracts are found
in this database
x
Rehabilitation Research Center for TBI & SCI
6, 21, 22,
23, 24, 25
21
SCI-FYI’s Top Ten List
Chapter(s)
9. City of San Jose, Office of Therapeutic Services/
South Bay Wheelchair Athletic Program
San Jose, CA
Website: <www.ci.san-jose.ca.us/prns)
• Sponsor a number of programs for individuals
with disabilities
• Support groups
• Aquatics
• Wheels on Fire - Junior Wheelchair Sports Team
• Pacific Spartans - Wheelchair Basketball Team
• San Jose Sting Quad Rugby Team
• Water Wheels Swim Team
• San Jose Steamrollers - Power Soccer Team
16
10. Websites for Locating Physicians
Website: <www.aapmr.org>
Website: <www.certifieddoctor.org>
Website: <www.docboard.org>
Website: <www.ama-assn.org/aps/amahg.htm
11
Spinal Cord Injury - For Your Information
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A.
Alcohol and Chemical Dependency Agencies
Assistive Technology Resources
Attendant Care Resources
Consumer Resources
Crisis Intervention, Counseling and Mental Health Agencies
Disability Related Organizations and SCI Associations
Driving Evaluation and Equipment
Durable Medical Equipment
Education Resources
Financial Aid and Assistance
Health Related Services
Housing Agencies and Resources
Independent Living
Legal and Advocacy Services
Parenting and Family Resources
Recreation, Leisure and Entertainment Resources
Regeneration and Curative Research
Research and Training Organizations
Resource Directories/Services and Information Resources
Resources for Special Populations
SCI Internet Resources
SCI Publications
Sexuality and Fertility Resources
Support Groups
Transportation and Travel
Vocational/Prevocational Services
Index
Individuals with SCI are at risk for dependency on alcohol and/or drugs. For many, the substance
use may have contributed to their SCI. For others, the loss of control, pain and depression often
experienced by individuals with SCI can lead to substance abuse.
Most individuals with SCI are in the age range where experimentation with drugs and/or alcohol
is common. Many with SCI turn to substance abuse (substances include alcohol and other mind
altering drugs, and abuse involves continued use despite the consequences or recurrent use in
situations when use is dangerous). The following agencies work with people who are involved
with substance abuse and dependence (dependence involves impaired control of the use of the
substance, and the continued use despite the consequences).
One major problem for people with SCI who use or abuse substances is the danger involved. The
use or abuse puts one at risk for further injury. Additionally, complications related to spinal cord
injury such as pressure sores, spasticity, and urinary tract infections are more frequent in those
who use drugs and/or alcohol.
As it is true with many of the other agencies and facilities listed in this resource guide, one type
of program may work better than another for an individual person. Substance abuse is treatable,
although not always easily. With all that in mind, below are listed many of the organizations and
facilities that offer some help in dealing with substance abuse.
Alcoholics Anonymous (AA)
24 hour help line: 408/374-8511
274 E. Hamilton Ave., Suite D
Campbell, CA 95008
E-mail: aasanjose.org
• 24 hour hotline
• Information on AA meetings in Santa Clara Valley
Monterey County/Salinas Location
24 hour help line: 831/424-9874
Adult and Child Guidance Center
408/288-6200
FAX: 408/288-6201
380 N. First St., Suite 200
San Jose, CA 95112
444 Castro St., Suite 122
Mountain View, CA 94041
650/968-3371
• Comadres women’s outpatient polydrug abuse program
• Compadres men’s outpatient polydrug abuse program
• Counseling services for children, adults, families and the elderly
1-1
1. Alcohol and Chemical Dependency Agencies
Al-Anon
408/379-9375
Meetings and locations: 408/379-1051
• Support groups for those whose lives have been affected by someone’s drinking
• Call for locations and meeting times
Asian-Americans For Community Involvement (AACI)
408/975-2730
2400 Moorpark Ave., Suite 300
San Jose, CA 95128
• Substance abuse intervention and treatment program
Blossoms Prenatal Substance Abuse Program
408/254-3396
3030 Alum Rock Ave.
San Jose, CA 95127
• Outpatient program for pregnant or parenting women
C.A.P.S. (Combined Addicts Prevention Services)
408/995-3820
Hotline: 408/998-4200
135 Gish Rd., Suite 200
San Jose, CA 95112
• 90 day outpatient program
• Must go through Gateway (managed care)
• Counseling and psychosocial groups
Chemical Dependency Institute of Northern California
408/559-2000
800/422-1845
2425 Samaritan Drive
San Jose, CA 95124
• Inpatient detox program
• Outpatient services
1-2
Chemical Dependency Recovery Center
650/940-7250
El Camino Hospital Chemical Dependency Services
2500 Grant Road
Mountain View, CA 94040-4378
• Individual counseling, lectures and group therapy sessions
• Free ongoing educational series
• AA meeting following every educational series
• Crisis intervention - stay of up to 24 hrs
Cocaine Anonymous
415/821-6155
San Francisco, CA
• Participants help each other to abstain from cocaine and other mind altering substances
• No counseling treatment or therapy at the sessions
Community Health Awareness Council
650/965-2020
P.O. Box 335
• Individual and group counseling
• Day treatment program for adolescents
Daytop Village
650/325-6466
2560 Pulgas Ave.
East Palo Alto, CA 94303
Redwood City location
650/367-9030
• Residential community for chemically dependent adolescents
Department of Alcohol and Drug Services
408/299-6141
FAX: 408/279-1843
976 Lenzen Ave., 3rd Floor
San Jose, CA 95126
• Information and referral only
1-3
Care Line: 650/940-7250
800/286-7123
2500 Grant Rd.
• Outpatient program
Family Health Foundation of Alviso
408/262-7944
P.O. Box 1240
Alviso, CA 95002-1240
• Information and referral
Fenix Services Institute
831/722-5914
FAX: 831/722-8311
406 Main St., Suite 403
Watsonville, CA 95076
• Domestic violence counseling
Gateway
24 hour phoneline: 800/488-9919
• Managed care referrals for those seeking county supported care
• Information and help line
Horizon Services, Inc.
510/784-5865
P.O. Box 308
Mt. Eden, CA 94551
• Non-residential and residential programs throughout the Bay Area
for men and women recovering from addiction to alcohol or other drugs
• Education and support services to individuals dealing with alcohol
or other drug related problems
Horizon South
408/283-8555
650 S. Bascom Ave.
San Jose, CA 95128
• 3-7 day detox
• Residential services
1-4
Kids are Special - Eastfield Ming Quong
408/364-4133
FAX: 408/364-4013
251 Llewellyn Ave.
Campbell, CA 95008-1999
Website: <www.emq.org>
• Children’s and parents’ groups for families with children impacted by substance abuse of
parent or caregiver
Mariposa Lodge
Alcohol Recovery Homes, Inc.
408/463-0131
FAX: 408/463-0337
Detox: 408/463-0122
P.O. Box 21268
San Jose CA 95151-1268
• Residential alcohol/drug program for women
Narcotics Anonymous
24 hour phoneline: 408/998-4200
National Council on Alcohol and Drug Dependency (NCADD)
408/292-7292
FAX: 408/292-9454
24hr Help: 408/292-9945
255 North Market, Suite 175
San Jose, CA 95110
• Crisis intervention help-line: 408/267-4357
• Drug prevention program, youth education program, minors in possession program
• Education program for individuals with family members in county treatment
Pathway House Residential Treatment Center
408/998-5191
102 South 11th St.
San Jose, CA 95112
• Comprehensive treatment program
• 12-step self-help groups
• Job development
1-5
Pathway Outpatient Program
408/244-1834
1659 Scott Blvd., Suite 30
Santa Clara, CA 95050
• Group, family and individual counseling for adults and adolescents
Santa Clara County Central Alcohol Services
(Treatment Alternative Program - TAP)
408/299-7280
976 Lenzen Ave., First Floor
San Jose, CA 95126-2607
• Individual and group counseling for alcohol abuse
Santa Clara County Women’s Treatment Services
408/299-8558
2220 Moorpark Ave., #10
San Jose, CA 95128
• Heroin addiction, detox services, and maintenance center
S.M.A.R.T. Recovery
(Self Management and Recovery Training)
408/739-7230
40675 Ladero St.
Fremont, CA 94539
• Discussion meetings - alternative to Alcoholics Anonymous
• Helps individuals cope with drug and alcohol dependency
Social Advocates for Youth
408/253-3540
1072 South DeAnza Blvd., Suite A-208
San Jose, CA 95129-3531
• Individual, group and family counseling for all ages
• Parenting workshops
• Assessments of drug and alcohol use
STEPS
408/971-0888
1445 Oakland Rd.
San Jose, CA 95112
• Group counseling
• Individual counseling
• Family counseling
• Programs focus on alcohol dependency
1-6
Stride Program
• Combined drug and alcohol program
• Group and individual counseling
• Outpatient program
East Valley Treatment and Recovery Center
408/270-2587
1675 Burdette Dr., Suite B
San Jose, CA 95121
West Valley Treatment and Recovery Center
408/378-7620
375 Knowles Ave.
Los Gatos, CA 95032
North County Treatment and Recovery Center
650/328-1441
231 Grant Ave.
Palo Alto, CA 94306
BOOKS
Alcohol and Other Drug Abuse Prevention for People with TBI and SCI
Rehabilitation Institute of Chicago Education and Training Center
312/908-6000
• Education and training book
Alcohol, Tobacco and Other Drug Prevention Activities for Youth and Adults with Disabilities
Substance Abuse Resources and Disability Issues (SARDI)
School of Medicine at Wright State University
P.O. Box 927
Dayton, OH 45401
937/259-1384
FAX: 937/259-1395
Website: <www.med.wright.edu/som/sardi/default.html>
1-7
Inform Yourself- Alcohol, Drugs and Spinal Cord Injury:
A Resource Guide for Persons with Spinal Cord Injury and Their Families
John de Miranda, Ed.M.
Available free of charge from:
Paralyzed Veterans of America - Publications Center
P.O. Box 753
Waldorf, MD 20604-0753
888/860-7244
301/932-7834
FAX: 301/843-0159
Website: <www.pva.org>
You Can’t Change the Past But You Can Choose a Future:
The Facts About Spinal Cord Injury, Tobacco, and Other Drugs
Resource Center on Substance Abuse Prevention and Disability
National Clearinghouse for Alcohol and Drug Information
P.O. Box 2345
Rockville, MD 20847-2345
800/729-6686
FAX: 301/468-6433
• Information about coping and life skills
VIDEOTAPES
Alcohol & Medications & You (1988)
Rehabilitation Research Training Center at Baylor College of Medicine
1333 Moursund, B-107
Houston, TX 77030-3405
713/797-5944
FAX: 713/797-5982
From Nowhere to Somewhere: Street Drugs and Your Rehabilitation (1988)
Rehabilitation Research Training Center at Baylor College of Medicine
713/797-5944
FAX: 713/797-5982
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Assistive technology is a broad term referring to the application of technology to assist individuals with SCI and other disabilities achieve independence by providing access to computers, communication devices and environmental controls. Assistive technology can enrich the lives of
individuals with SCI by expanding educational and employment options, and assisting with
aspects of daily life.
Specific equipment consists of high tech tools to help individuals with SCI overcome physical
obstacles and may include assistive devices such as specialized computer keyboards, software,
joysticks, interactive touch screens, hands-free voice recognition systems, customized switches
and other appliances.
The first step in determining which type of equipment is appropriate for you is to be evaluated
by a professional to determine your individual technology needs, abilities and goals in your environment. Your physical limitations and the skills necessary to use strategies and devices will all
be taken into consideration before recommendations for specific equipment are made.
The organizations listed below can provide you with information on evaluation and training for
assistive technology, as well as specific devices available for individuals with SCI.
Abledata
800/227-0216
301/608-8998
8455 Colesville Rd.
Silver Springs, MD 20910-3319
• Extensive collection of over 25,000 commercially available
assistive technology aids and devices
Ablenet
800/322-0956
FAX: 612/379-9143
1081 10th Ave. SE
Minneapolis, MN 55414
• Designs and manufactures simple to use technology
• No assessments
Accent on Info
309/378-2961
FAX: 309/378-4420
P.O. Box 700
Bloomington, IL 61702
E-Mail: [email protected]
• Publishes magazine 4 times a year; $12.00 subscription
• Sell books and products
• Information on consumer products
2-1
2. Assistive Technology Resources
Adaptive Device Locator System
Academic Software, Inc
800/842-2357
606/233-2332
331 West Second St. at Broadway
Lexington, KY 40507
• Software package listing types of devices on the market and vendors
• $195 for package
Assistive Device Assessment Program (ADAP)
619/594-6477
6330 Alverado Ct., Suite 100
San Diego, CA 92120
• Assessment only
• Speech therapy
Assistive Technology (AT) Network
800/390-2699
916/325-1690
660 “J” Street, Suite 270
Sacramento, CA 95814-2495
Email: [email protected]
• Information and referral network that provides free information on:
-devices for daily living,
-assistive technology funding resources,
-assistive technology service providers/suppliers,
-assistive technology community resources
Augmentative Communication News
831/649-3050
1 Surf Way, #237
Monterey, CA 93940
• Publishes two newsletters
• Information and referral services
2-2
C.A.T.S.
916/327-3967
800/390-2699
Assistive Technology Network
Sacramento, CA 95814
• Referrals
• Newsletter
• Contracts with other agencies
Center for Accessible Technology
510/841-3224
2525 Eighth St.
Berkeley, CA 94710
E-mail: [email protected]
• Computer access evaluations
• Resource and training center
Center for Computer Assistance to Disabled (C-CAD)
214/800-2223
FAX: 214/800-2224
1950 No. Stemmons Freeway, Suite 4041
Dallas, TX 75207
Website: <http://www.c-cad.org>
• Information and referrals on assistive technology
• Training
Central Coast Assistive Technology Center
805/549-7420
FAX: 805/549-7423
TDD: 805/549-7424
1150 Laurel Lane #132
P.O. Box 4310
San Luis Obispo, CA 93403
• Non-profit center performs evaluations (OT, SP, and Rehab technicians)
2-3
Clearing House for Specialized Media and Technology
State Department of Education
916/445-1290
560 “J” St., Suite 390
Website: <www.cde.CA.gov>
• Educational catalog of services and devices for K-12
Closing the Gap
507/248-3294
FAX: 507/248-3810
P.O. Box 68
Henderson, MN 56044
Website: <www.closingthegap.com>
• Publishes a bi-monthly newslettter providing information $29.00/yr.
• Publishes a resource directory - $14.95
• Annual conference held in October
Communication Aids for Children and Adults
Crestwood Company
414/351-0311
6625 No. Sidney Place
Milwaukee, WI 53209-3259
• Information on products
• Merchandise catalog
Davies Medical Center
415/565-6130
FAX: 415/565-6025
Castro and Duboce Streets
San Francisco, CA 94114
• Outpatient occupational therapy and rehabilitation
• Aptitude testing
Department of Rehabilitation
800/390-2699
916/445-8638
TTY: 800/900-0706
830 K Street Mall
• Assistive technology evaluations
2-4
Disabled Programmers, Inc (DPI)
408/278-2000
FAX: 408/278-2010
One North First St., Suite 120
San Jose, CA 95113
Website: <www.dpiaccess.org>
• Prepares individuals with disabilities for jobs in Information Technology (IT)
• Computer Access Lab helps individuals with disabilities evaluate, develop,
and implement adaptive technology solutions and the Internet
Innotek
National Lekoteck Center
847/328-0001
FAX: 847/328-5514
2100 Ridge Ave.
Evanston, IL 60201
• Information on locating assistive devices and adapted toys
• Adapted toys for children
Leon S. Peters Rehab Center
559/459-6000
Fresno & R Street
Fresno, CA 93715
• Acute inpatient and outpatient evaluations
Mobility Engineering
Sonoma Developmental Center
707/938-6445
P.O. Box 1493
Eldridge, CA 95421
• Must be Developmental Center clients
• Adaptive devices
• Asssessments
• Focus on wheelchairs
2-5
Project Link
Center for Assistive Technology
800/628-2281
515 Kimball Tower, University of Buffalo
3435 Main St.
Buffalo, NY 14214-3079
• Application of assistive devices
• Identify devices for individuals
REACH
817/870-9082
FAX: 817/877-1622
TDD: 817/870-9086
1205 Lake St.
Fort Worth, TX 76102
• Newsletter
• Advocacy
• Independent Living Center
RehabTool.Com
281/531-6106
FAX: 281/531-6406
P.O. Box 572190
Houston, Texas 77257
Website: <www.rehabtool.com>
• RehabTool.com builds augmentative and alternative communication devices, computer
access equipment, multilingual speech synthesis and voice recognition software, on-screen
keyboards, and cognitive rehabilitation tools
• Free product searches and referrals
• Quarterly newsletter
2-6
Request Rehabilitation Engineering Center
202/877-1932
TDD: 202/726-3996
102 Irving St. N.W.
Washington, DC 20010
Website: <www.nrhatrc.org>
• Computer assessment and training program
• Virtual Reality research
RESNA
703/524-6686
FAX: 703/524-6630
1700 N. Moore St., Suite 1540
Arlington, VA 22209-1903
Website: <www.resna.org>
• Information and technical assistance
Sacramento Area Easter Seals Society
916/485-6711
3205 Hurley Way
• Evaluations and assessments
Technical Aid Facilitation (TAF)
Tetra Society of North America
604/688-6464
FAX: 604/688-6463
Plaza of Nations, Box 27
770 Pacific Boulevard So.
Vancouver, British Columbia V6B 5E7 Canada
• Assistive devices that cannot be found commercially
Trace Research and Development Center
608/262-6696
FAX: 608/262-8848
TDD: 608/263-5408
S-151 Waisman Center and Department of Individual Engineering
1500 Highland Ave.
Madison, WI 53705-2280
Website: <www.trace.wisc.edu>
• Information database of products- Co-net
• Access Pack- Assistive computer devices
2-7
United Cerebral Palsy
925/832-7430
1970 Broadway, Suite 305
Oakland CA 94612
• Information
• Catalogs on assistive technology
VIVCO
408/268-1214
6670 Landerwood Ln.
San Jose, CA 95120
• Wheelchair mobility and seating
• Develop prototypes for individuals with special needs
Worldwide Disability Solution Group
Apple Computer Inc.
800/600-7808
408/974-7910
One Infinite Loop, M/538-DS
Cupertino, CA 95014
Website: <www.apple.com/disability>
FINANCIAL REIMBURSMENT
Foundation Center
800/424-9836
212/620-4230
FAX: 212/807-3677
79 5th Ave.
New York, NY 10003
Website: <wwwfdncenter.org>
• Provide info on funding sources for non-profit organizations
2-8
WRITTEN RESOURCES
Adapting PC’s for Disabilities (1996)
Joseph Lazarro
Addison-Wesley-Longman Publishing Company
800/822-6339
One Jacob Way
Reading, MA 10867-3999
Website: <www.aw.com>
Assistive Devices for Use with Personal Computers
National Library Service for the Blind and Physically Handicapped
202/707-9275
Library of Congress
Website: <www.loc.gov/nls>
• Guide to the different kinds of products available to assist individuals
with physical disabilities access information displayed on a computer screen.
Assistive Technology for People with Spinal Cord Injury (1996)
ABLEDATA
800/227-0216
8455 Colesville Rd., Suite 935
Silver Springs, MD 20910
Website: <www.abledata.com/funding.htm>
Computer Resources for People with Disabilities:
A Guide to Exploring Today’s Assistive Technology (1996)
800/266-5592
510/865-5282
Hunter House Publishers, Inc.
P.O. Box 2914
Alameda, CA 94501-0914
Evaluating, Selecting and Using Appropriate Assistive Technology (1996)
Jan C. Galvin and Marcia J. Scherer
Aspen Publishers, Inc.
800/638-8437
200 Orchard Ridge Dr., Suite 200
Gaithersburg, MD 20878
Website: <www.aspenpub.com>
2-9
Informed Consumer Guide to Information on Funding Assistive Technology (1998)
ABLEDATA
800/227-0216
8455 Colesville Rd., Suite 935
Silver Spring, MD 20910
Website: <www.abledata.com/funding.htm>
The Trace Resourcebook: Assistive Technology for Communication,
Control and Computer Access (1998)
University of Wisconsin
608/263-2309
5901 Research Park Blvd.
Madison, WI 53719
Website: <www.trace.wisc.edu>
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
For many individuals with SCI, part of coming to terms with the spinal cord injury is accepting
that as a result of physical limitations, there is now a need to rely on someone else to fulfill some
of your needs. Personal assistant services can include a variety of activities which range from
assistance with grocery shopping and meal preparation to bathing, bowel and bladder care. The
Personal Care Assistant (PCA) is the person who assists the individual with SCI with his or her
self-care activities. The PCA is also referred to as an “attendant” or “caregiver” whether the care is
being provided by a family member, friend or hired employee.
Included in this chapter are resources to assist you with finding, hiring and managing a PCA. A
good first step in finding a PCA is to contact your local Independent Living Center (ILC).
Attendant care is one of the key services ILCs are funded to provide. Most ILCs keep a listing of
potential attendants that may or may not have been first screened by the staff, and some offer
classes to train the person with SCI who may need assistance with the hiring and management
process. Classes may even be offered for the prospective attendant, who may not be familiar
with the issues involved in caring for an individual with SCI. For the ILC nearest you, refer to
Chapter 13.
In-Home Support Services (IHSS)
408/928-3737
591 N. King Rd.
San Jose, CA 95133
• County social services agency
• Based on SSI qualifications
• Personal Care Assistant (PCA) funding. This office only supplies the money to those who
qualify to pay the PCA’s wages. Finding and supervising the PCA is the responsibility of the
individual with SCI
Independent Living Research Utilization (ILRU)
713/520-0232
TIRR
1333 Moursund
Houston, TX 77019
• Research and Training Center in Independent Living, which has books and
manuals available on attendant care
3-1
3. Attendant Care Resources
Silicon Valley Independent Living Center
408/894-9041
FAX: 408/894-9050
2306 Zanker Rd.
San Jose, CA 95131
Silicon Valley Independent Living Center - Gilroy
408/847-1805
7415 Eigleberry Street, Suite C
Gilroy, CA 95020
• Personal Care Assistant recruitment and referral, training in the management of PCAs
• Information and referral regarding available and accessible housing
ON-LINE RESOURCES
In-Home Support Services Website
Website: <www.calhomecare.org>
• This website tracks current advocacy efforts, legislative initiatives and events to improve
home care worker pay and benefits
The DRM WebWatcher
Disability Resources Monthly
Website: <www.disabilityresources.org/PCA.html>
• Online links to many SCI related websites with information on personal care assistants
University of Alabama at Birmingham
Spinal Cord Injury Information Network
• An excellent website where 18 Fact Sheets covering various aspects of spinal cord injury are
available free of charge. Select P and choose “Personal Attendant Services” for a variety of
on-line documents and other resources, some of which are available in Spanish
BOOKS AND PAMPHLETS
Attendant Care Services - Fact Sheet #7
Arkansas Spinal Cord Commission
501/324-9624
1120 Marshall Street, Suite 207
Little Rock, AR 72202
3-2
Avoiding Attendants from Hell:
A Practical Guide to Finding, Hiring and Keeping Personal Care Attendants (1998)
Science and Humanities Press
636/394-4950
FAX: 636/394-1381
P.O. Box 7151
Chesterfield, MO 63006-7151
Website: <www.sciencehumanitiespress.com>
A Checklist for Evaluating Personal Care Assistant Services (1993)
Center on Human Policy
Syracuse University
200 Huntington Hall
Syracuse, NY 13244-2340
Enhancing Independence: A Personal Care Attendant Training Manual
Shellie Nazarus, Information Specialist
Missouri Model Spinal Cord Injury System
Howard A. Rusk Rehabilitation Center
573/882-3341
One Hospital Drive, DC046.00
Columbia, MO 65212
Getting from Here to There - A Manual on Personal Assistance (1996)
Catherine D. Ludlum
A. J. Pappanikou Center
860/486-5035
249 Glenbrook Rd., U-64
Storrs, CT 06269-2064
Hiring and Management of Personal Care Assistants for Individuals with Spinal Cord Injury (1999)
Debra L. Burdsall, MPH, OTR
800/352-1956 x24
408/295-9896 x24
FAX: 408/295-9913
San Jose, CA 95128
Available online at <www.tbi-sci.org>
3-3
Hiring Home Health Caregivers (1995)
Helen Susik
Impact Publishers
805/543-5911
P.O. Box 1094
Personal Assistance Service Guide (1998)
Utah Assistive Technology Program
Center for Persons with Disabilities
435/797-1991
FAX: 435/797-2355
6588 Old Main Hill
Logan, UT 84322-6855
Website: <www.uatp.usu.edu>
Personal Assistance Training Manual (1997)
Shepherd Center
404/350-7473
2020 Peachtree Rd. NW
Atlanta, GA 30309
Personal Care Assistants: How to Find, Hire and Keep Them (1995)
Available in English and Spanish
Research Department
RRTC on Aging with a Spinal Cord Injury
Craig Hospital
800/573-4228
303/789-8202
3425 S. Clarkson Street
Englewood, CO 80110
Personal Care Assistants - SCI Information Sheet #6
RRTC Training Office - Room 506
205/934-3283
Spain Rehabilitation Center
1717 6th Ave., South
Birmingham, AL 35233-7330
3-4
Preventing Secondary Medical Complications:
A Guide for Personal Assistance to People with Spinal Cord Injury (1992)
UAB - Spain Rehab Center
RRTC Training Office - Room 506
1717 Sixth Ave., South
A Step-by-Step Guide to Training and Managing Personal Assistants (1998)
Volume 1: Consumer Guide
Volume 2: Agency Guide
Research and Training Center on Independent Living (RTC/IL)
785/864-4095
4089 Dole Building University of Kansas
Lawrence, KS 66045
Taking Care of Yourself While Providing Care (2000)
Richard Holicky, M.A.
Craig Hospital Research Department
303/789-8308
3425 Clarkson St.
Englewood, CO 80110
Website: <www.craighospital.org>
• $5.00
• A guide for those who assist and care for their spouses, parents, and other loved ones who
have spinal cord injuries
ORGANIZATIONS
National Database of Educational Resources for SCI
The Institute for Rehabilitation and Research (TIRR)
713/797-5944
• This organization can do a free search to locate materials related to all aspects of
the training and management of personal care assistants
The Research and Training Center on Independent Living (RTC/IL)
University of Kansas
785/864-4095
4089 Dole Building
Lawrence, KS 66045
• Offers information and materials on training your personal care assistant
3-5
AUDIOTAPES
Busting Loose to Independence: Through Personal Attendant Services (1989)
RRTC in Community Integration for Individuals with SCI
Baylor College of Medicine
713/797-5945
FAX: 713/797-5982
Available in English and Spanish
• A series of four audiotapes that covers every aspect of Personal Care Assistants, from the
decision to hire them to the details of finding, keeping and firing them
VIDEOTAPES
Personal Assistance Services Video Series (1993)
The Consumer: Issues and Answers
The Provider: On Being a Personal Assistant
The Community: A Vision
Shepherd Center
404/350-7473
Atlanta, GA 30309
Attendant Care Basics: An Orientation
Partners in Independence: The PCA’s Role in Pressure Sore Prevention
One-to-One (maintaining a Good Relationship with your PCA)
Available on loan from:
Spinal Cord Injury Network International
800/548-2673
3911 Princeton Dr.
Santa Rosa, CA 95405-7013
Website: <www.spinalcordinjury.org>
Personal Assistant Recruitment (1994)
Marionjoy Rehabilitation Hospital
26W171 Roosevelt Rd.
Wheaton, IL 60189-0795
3-6
SELF-CARE MANUALS
Self-care or patient education manuals can be a great resource to use when training your personal care assistant. Most of the following manuals have chapters on attendant care, and have
detailed chapters on bowel, bladder, and skin care, as well as information on range of motion
and exercise programs for individuals with SCI.
Pathways to Health: You Do Have A Choice ($7.00)
Kenneth A. Gerhart
Craig Hospital Research Department
303/789-8202
3425 S. Clarkson St.
Englewood, CO 80110
• Focuses on making healthy choices for people living with SCI
Spinal Cord Injury Patient Education Manual ($72.00)
800/638-8437
200 Orchard Ridge Drive, Suite 200
Contact: Eric Lehto
Spinal Cord Injury: A Manual for Healthy Living ($65.00)
Division of Education
713/797-5944
Spinal Cord Injury Homecare Manual ($60.00)
Kessler Institute for Rehabilitation
201/731-3600
1199 Pleasant Valley Way
West Orange, NJ 07052
Contact: Marilyn Homick, Patient Education Coordinator
The Spinal Cord Injury Handbook for Patients and Their Families ($15.45)
Richard C. Senelick and Karla Dougherty
HealthSouth Press
800/688-0737
9119 Cinnamon Hill
San Antonio, TX 78240
Website: <www.healthsouth.com>
3-7
Yes, You Can!: A Guide to Self-Care for Persons with Spinal Cord Injury ($15.00)
Paralyzed Veterans of America
Education Department; c/o Office Services
800/424-8200
801 N. 18th Street NW
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Consumer Resources
The following organizations may be useful for individuals with SCI in dealing with consumer
issues. Keep in mind, as with any other consumer item, the tremendous individuality among the
SCI population. Therefore, what may be helpful to one individual may not be useful for another,
depending on the specific situation and need.
Billy Defrank Lesbian and Gay Community Center
408/293-2429
175 Stockton
San Jose, CA 95126
Website: <www.defrank.org>
• Group meetings for gay and lesbians with disabilities
California Children’s Services
408/299-5891
FAX: 408/971-3538
720 Empey Way
San Jose, CA 95128
• Funds medical services for individuals with SCI if the injury occurred before age 21
Consumer Affairs
State of California
916/445-1254
• Offer information and referral for consumer issues
Help Santa Clara County
Directory of Health and Human Services
Website: <www.HelpSCC.org>
• A comprehensive online directory of county-wide government
and non-profit services in Santa Clara County
Medic Alert Foundation
209/668-3333
2323 Colorado Ave.
Turlock, CA 95382
Website: <www.medicalert.org>
• Offers Medic Alert bracelets/necklaces, which can inform
emergency medical personnel of medical complications
4-1
4. Consumer Resources
Mental Health Advocacy Project
408/294-9730
800/248-MHAP
FAX: 408/293-0106
111 W. Saint John St., Suite 315
San Jose, CA 95113
• Free legal services for individuals with mental or developmental disabilities
Pacific Bell Universal Lifeline
800/310-2355
• Telephone services for low income households
Pacific Gas and Electric
800/743-5000
TDD TTY: 800/652-4712
• Medical baseline rate for individuals with special heating/cooling needs
or life support devices
Small Claims Advisory
Santa Clara County
408/792-2881
• Answers questions about small claims court
• Provides assistance with filling out forms
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Education Resources
Independent Living
SCI Publications
Support Groups
Index
Crisis Intervention, Counseling, & Mental Health Agencies
Below you will find some services that are available for people in crisis from the repercussions of
SCI. SCI can have a devastating effect on the individuals who experience it and their families.
Often, a prompt referral to a professional who has experience working with the SCI population is
necessary. If you feel yourself or another individual is in any need for help with a crisis situation,
please call one of the listings below. Be prepared to give a complete description of the problem,
so that the agency can help quickly and effectively.
With the current economic situation in the county, the state and the country, there is often not
enough funding at times for these agencies, and some may change by the time you read this. If
you have any questions or feedback, please contact us at the Rehabilitation Research Center for
TBI and SCI.
Finding a professional or agency who understands and is sensitive towards the needs of those
with SCI is difficult and these professionals and agencies should be cultivated, used again (and
again), and referred to others with similar needs.
If you feel that your life or the life of your family member is in danger, the fastest assistance
could come from emergency services or the police, accessible by dialing 911.
Alcoholics Anonymous (AA)
24-hr hotline: 408/374-8511
274 E. Hamilton Ave., Suite D
Campbell, CA 95008
Monterey County/Salinas
24-hr hotline: 831/424-9874
Asian-Americans for Community Involvement (AACI)
408/975-2730
San Jose, CA 95128
• Mental health program
Crisis Line for the Handicapped
24-hr: 800/426-4263
24-hr TDD: 800/421-4327
P.O. Box 24791
San Jose, CA 95154
• Serves California and Nevada
• Volunteer peer counseling, support, and information and referral
5-1
5. Crisis Intervention, Counseling, & Mental Health
COUNSELING AND ASSESSMENT
Access Program (Acute Crisis Care & Entry Into System Services)
408/299-5800
Central Mental Health Center
2221 Enborg Ln.
San Jose, CA 95128
• Assessment and referral only
• Will see individuals in crisis and escort over to Emergency Psychiatric Services (EPS)
Adult and Child Guidance Center of Santa Clara Valley
408/288-6205
380 North First St., Suite 200
San Jose, CA 95112
• Counseling services for children, adults, families, and the elderly
408/885-6220
2221 Enborg Ln.
San Jose, CA 95128
• Day treatment and counseling for mental health consumers
Community Psychotherapy Institute
408/244-1362
940 Saratoga Ave., Suite 105
San Jose, CA 95129
• Individual counseling
• Parenting program
Hope Rehabilitation Services Counseling Center
408/282-0402
FAX: 408/282-0400
1555 Parkmoor Ave.
San Jose, CA 95128
• Provides services to those who are autistic, have cerebral palsy, seizures,
mental retardation or traumatic brain injury
• Counseling center
5-2
Independent Living Resource Center of San Francisco
415/543-6222
TDD: 415/543-6698
FAX: 415/543-6318
649 Mission St., 3rd Floor
• Peer counseling services
Next Door
408/279-7550
FAX: 408/279-7562
1181 N. 4th St., Suite A
San Jose, CA 95112
• Psychotherapy and support group
Rehabilitation Education Assistance Program (REAP)
Salinas Adult School
831/753-4268
FAX: 831/753-4276
20 Sherwood Place
Salinas, CA 93906
• Must live in the Salinas Valley
• Counseling
San Jose Veterans Center
408/993-0729
278 N. Second St.
San Jose, CA 95112
• Veterans counseling center for post-traumatic stress disorder
Santa Clara County Psychological Association
408/253-1151
510/790-2371
650/321-7789
P.O. Box 8165
Fremont, CA 94537-8165
• Referrals to psychologists
5-3
Department of Psychology
408/885-4440
751 So. Bascom Ave.
San Jose, CA 95128
408/894-9041
FAX: 408/894-9050
2306 Zanker Rd.
San Jose, CA 95131
• Individual and group support counseling
• Counseling for families, spouses and significant others
Suicide and Crisis
Central County: 408/279-3312
North County: 650/494-8420
South County: 408/683-2482
• Hotlines for individuals in crisis
CRIME VICTIMS
Victim Witness Assistance Program
408/295-2656
777 No. First St., Suite 500
San Jose, CA 95112
• Crisis intervention and advocacy for crime victims
Victims of Crime Resource Center
800/842-8467
• Legal referrals and information for victims of crime
• Referrals to local Victim Witness Assistance offices for
compensation under the Victims of Crime Act
5-4
DEATH AND DYING
Aris
408/293-2747
1550 The Alameda, Suite 100
San Jose, CA 95126
Website: <www.aris.org>
• Support agency for individuals with AIDS and HIV
• Shared housing
• Emotional support
• Prevention and education programs
Centre for Living with Dying
408/980-9801
554 Mansion Park Drive
• Offers support to help individuals cope with the trauma of an illness or death of a loved one
• Crisis intervention
• Support for grief, mourning, suicide and trauma
• Healing Hearts Program for children and adolescents
• Seniors Linc - seniors living in crisis
Disabled and Alone
Life Services For the Handicapped
800/996-0066
352 Park Ave., South, Suite 703
New York, NY 10010
• Assists families in planning for the death of a caregiver
El Camino Hospital
“Living With Loss”
800/216-5556
2500 Grant Rd., Ground Floor - Meeting Room “A”
• Support group for individuals dealing with loss due to the death of a family member,
loved one or friend
• 2nd & 4th Monday, 3:00 - 4:30 PM
KARA
650/321-5272
457 Kingsley Ave.
Palo Alto, CA 94301
• Adult individual and group counseling
• Counseling for children and teens
5-5
DOMESTIC VIOLENCE
408/975-2730
San Jose, CA 95128
• Asian Women’s Home shelter for abused women and children
• Domestic violence prevention and treatment
Battered Women’s Hotline for Lesbians, Bisexuals and Straight Women
24-hr hotline: 415/864-4722
Community Solutions
24-hr hotline: 408/638-4118
24-hr hotline: 408/637-SAFE
• Shelter for battered women and their children
• Domestic violence counseling and support groups
• Legal advocacy and assistance
• Domestic violence prevention and education programs
• Batterers intervention program
Community United Against Violence
24 hr hotline: 415/333-4357
415/777-5500
973 Market St., Suite 500
• Support for battered gay men, lesbians, and bisexuals
• Advocacy and legal assistance
• Counseling and support groups
• Emergency assistance
Emergency Shelter Program
24-hr hotline: 510/786-1246
22634 Second St., Suite 205
Hayward, CA 94541
• Serves Alameda county
• Shelter facilities
• Support groups and counseling
5-6
Next Door
24-hr hotline: 408/279-2962
408/279-7562
1181 N. 4th St., Suite A
San Jose, CA 95112
• Therapy and support groups
• Emergency shelter
• Parenting classes for women
• One-to-one counseling for men
• Legal clinic for restraining orders
San Francisco Network for Battered Lesbian and Bisexual Women
415/281-0276
San Mateo County Battered Women’s Services
24-hr hotline: 650/312-8515
• Legal advice
• Counseling services
• Support groups
• Shelter facility
Santa Cruz County Women’s Crisis Support
24-hr hotline: 831/429-1478
• 24-hr crisis counselors
Shelter Against Violent Environment (SAVE)
24 hr hotline: 510/794-6055
• Fremont and Alameda county
Support Network for Battered Women
24-hr hotline: 650/940-7855
650/940-7850
444 Castro St., Suite 305
• Legal support
• Therapy and counseling
• Support groups
• Referral to emergency housing for battered women and their children
• Emergency shelter
5-7
Women and Their Children’s Housing (W.A.T.C.H.)
408/271-9422
P.O. Box 361358
Milpitas, CA 95036
• Transitional housing for battered women and their children for up to two years
MENTAL HEALTH
Access Program (Acute Crisis Care & Entry Into System Services)
408/299-5800
2221 Enborg Ln.
San Jose CA 95128
• Assessments
• Collaborates with the Emergency Psychiatric Services
Alliance for Community Care
408/261-7777
2001 The Alameda
San Jose CA 95126-1136
Website: <www.alliance4.org>
• Provides counseling for individuals diagnosed with a mental illness
408/282-0402
1555 Parkmoor Ave.
San Jose, CA 95128
• Counseling (i.e. marriage, parenting, individual) for the physically and mentally disabled
408/294-9730
111 W. St. John St., Suite 315
San Jose, CA 95113
• Provide legal services to all mental health diagnoses
• Patient’s rights, economic issues (SSI), and landlord/tenant rights
5-8
Mental Health Association of San Francisco
415/241-2926
1119 Market Street, Suite 200
• Non-profit advocacy group that works with city and
local governments to make sure individuals receive entitled service
Santa Clara County Mental Health
408/885-5770
645 South Bascom Ave.
San Jose, CA 95128
• Counseling, group counseling, medication issues
• Will see individuals in crisis and escort over to Emergency Protective Services
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Disability Related Organizations
The organizations listed below work in some way to improve the lives of individuals with
disabilities. Some of the organizations offer services for persons with specific disabilities;
however, not all specialize in the needs of individuals with SCI. Often, organizations that are not
designated specifically to provide services for persons with SCI and their families do not understand the unique needs of people with SCI. You can help by gently educating the facility/person
about the issues commonly experienced by individuals with SCI.
American Association of Spinal Cord Injury Nurses
718/803-3782
FAX: 718/803-0414
75-20 Astoria Blvd.
Jackson Heights, NY 11370-1177
Website: <www.aascin.org>
• Membership organization for spinal cord injury nurses
American Association of Spinal Cord Injury Psychologists and Social Workers
718/803-3782
FAX: 718/803-0414
75-20 Astoria Blvd.
Website: <www.aascipsw.org>
• Membership organization for spinal cord injury psychologists and social workers
American Chronic Pain Association
916/632-0922
P.O. Box 850
Rocklin, CA 95677
Website: <www.theacpa.org>
• Provides information on support groups
• Education on coping skills
American Paraplegia Society
718/803-3782
FAX: 718/803-0414
75-20 Astoria Blvd.
Website: <www.apssci.org>
• Membership organization for physicians and researchers treating spinal cord injuries
6-1
6. Disability Related Organizations
American Spinal Injury Association (ASIA)
404/355-0772
FAX: 404/355-1826
Atlanta, GA 30309
Website: <www.asia-spinalinjury.org>
• Professional association for physicians and other clinicians working
in the field of SCI research, prevention and medicine
American Syringomyelia Alliance Project (ASAP)
903/236-7079
FAX: 903/757-7456
P.O. Box 1586
Longview, TX 75606-1586
• Information and support network
Christopher Reeve Paralysis Foundation
(formerly American Paralysis Association)
973/379-2690
800/225-0292
FAX: 973/912-9433
500 Morris Ave.
Springfield, NJ 07081
Website: <www.paralysis.apacure.org/crf>
• Encourages and supports research to find a cure for paralysis caused by SCI
• Supports non-profit organizations seeking to improve the quality of life
of individuals with SCI
California Rehabilitation Association (CRA)
916/441-5844
980 Ninth St., #420
Website: <www.calrehab.org>
• Trade association representing rehabilitation facilities
Disability Resources, Inc.
516/585-0290
Four Glatter Lane
Centerreach, NY 11720
Website: <www.disabilityresources.org>
• Publishes monthly newsletter that includes resources
on various topics related to disability
6-2
Heath Resource Center
800/544-3284
202/939-9320
FAX: 202/833-4760
One Dupont Circle, NW, #800
Washington, DC 20036-1193
• Disseminates information on education for persons with disabilities
International Medical Society of Paraplegia (US Office)
713/797-5910
713/799-7017
c/o T. Giles
1333 Moursund Ave.
Houston, TX 77030
• Professional organization for physicians working with people with SCI
International Ventilator Users Network (IVUN)
314/534-0475
FAX: 314/534-5070
4207 Lindell Blvd., Suite 100
St. Louis, MO 63108-2915
• Newsletter subscription $17.00/annually
Kent Waldrep National Paralysis Foundation
800/925-2873
972/248-7100
FAX: 972/248-7313
16415 Addison Rd., Suite 550
Addison, TX 75001
Website: <www.kwnpf.org>
Steve Palermo Chapter
800/513-3700
913/451-3700
FAX: 913/338-0003
11350 Tomahawk Creek Parkway, Suite 200
Leawood, KS 66211
• Fundraising efforts to facilitate a cure for paralysis
6-3
800/782-6387
305/243-6001
FAX: 305/243-6017
P.O. Box 016960, R-48
Miami, FL 33101
Website: <www.miamiproject.miami.edu>
• Clinical research on SCI and paralysis
• Provide information to consumers
National Easter Seal Society
800/221-6827
888/854-6444
230 W. Monroe St., Suite 1800
Chicago, IL 60606
• Call for the Easter Seal office nearest you
• Educational evaluation services
• Technological assistance
• Vocational evaluation, occupational therapy and training
• Psychosocial evaluation and counseling
• Recreational and social services
National Institute on Disability and Rehabilitation Research (NIDRR)
202/205-8736
FAX: 202/205-8515
330 “C” Street, SW, Rm. 3430
Website: <www.ed.gov/offices/OSERS/NIDRR>
• Funds research in the field of rehabilitation
National Organization on Disability (NOD)
202/293-5960
FAX: 202/293-7999
910 16th Street N.W., Suite 600
•Referrals to services
6-4
National Rehabilitation Association
703/836-0850
FAX: 703/836-0848
TDD: 703/836-0849
633 S. Washington Street
Alexandria, VA 22314
Website: <www.nationalrehab.org>
• Non-profit organization for professionals in the field of rehabilitation
• Offer two publications, continuing education, and conferences
National Rehabilitation Information Center (NARIC)
800/346-2742
301/562-2400
FAX: 301/562-2401
1010 Wayne Ave., Suite 800
Website: <www.naric.com/naric>
• Collection of reference articles
• Library of information
National Spinal Cord Injury Association
800/962-9629
301/588-6959
The Zalco Building
870 Georgia Ave., Suite 500
• Resource Center
• Membership
• SCI Life magazine
• In Touch with Kids Network for children with SCI
6-5
National SCI Hotline
800/526-3456
410/448-6623
FAX: 410/448-6627
2200 Kernan Rd.
Baltimore, MD 21207
Website: <www.scihotline.org>
• Peer support
National Spinal Cord Injury Statistical Center
205/934-5049
FAX: 205/934-2709
UAB School of Medicine
1717 6th Ave. S., Room 544
Birmingham, AL 35249
• Since 1977 has directed the collection, management and analysis of the extensive NIDRRfunded SCI National Database
Paralysis Care Network
219/483-2100
FAX: 219/484-5059
3320 North Clinton St.
Fort Wayne, IN 46805
• Provides educational resources to enhance quality of care
Paralysis Society of America
888/772-1711
FAX: 703/684-6048
515 King St., Suite 420
Website: <www.psa.org>
• Membership organization for individuals who have sustained a SCI
• Provides information, services and advocacy
6-6
800/273-6789
202/872-1300
801 Eighteenth St., NW
• Organization that works to improve healthcare and rehabilitation and advocates for
the civil rights of paralyzed veterans and all individuals with paralysis
President’s Committee on Employment of People with Disabilities
202/653-5044
1111 20th Street, NW, Suite 636
• Provides information regarding employment
• Distributes publications on employment and the Americans With Disabilities Act (ADA)
Rehabilitation International
212/420-1500
FAX: 212/505-0871
25 East 21st Street
New York, NY 10010
E-Mail: [email protected]
• Information and resources
San Luis Obispo County Access (SLOCO Access)
805/543-3276
P.O. Box 4834
1150 Laurel Lane, Suite 132
Website: <www.slonet.org/~access/>
• Organization dedicated to improving the lives of people with disabilities
on the Central Coast
• Community education, advocacy, information and social activities
6-7
Silicon Valley Independent Living Center (SVILC)
408/894-9041
FAX: 408/894-9050
2306 Zanker Rd.
San Jose, CA 95131
• Personal care assistant recruitment and referral; training in the management of personal
care assistants
• Information and referral regarding available and accessible housing
• Counseling, individual and group support
• Residential training program
• Newsletter - The Dispatch
Spina Bifida Association of America
800/621-3141
202/944-3285
4590 McArthur Blvd. N.W., Suite 250
Website: <www.sbaa.org>
800/548-2673
707/577-8796
FAX: 707/577-0605
3911 Princeton Dr.
Website: <www.spinalcordinjury.org>
• Video lending program
6-8
Spinal Cord Society
218/739-5252
218/739-5262
FAX: 218/739-5262
Wendell Rd.
Fergus Falls, MN 56537
Website: <users.aol.com/scsweb>
• Funds SCI research
• Newsletter
World Institute on Disability (WID)
800/695-4005
510/763-4100
FAX: 510/763-4109
510 16th Street, Suite 100
Oakland, CA 94612-1500
Website: <www.wid.org>
• Research and policy organization
• No direct client services
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
For many individuals with SCI, driving can become a reality given the array of driving equipment
and vehicle modifications available today. Driving is an important skill in our society. Often individuals with SCI can relearn this skill through specialized driver’s training.
The first step in the process of learning to drive with a SCI is to receive a thorough evaluation to
determine what you need in terms of your individual needs for basic driving set-up, specific
modifications, and driving equipment. Your positioning requirements will also be taken into consideration. Once you have been evaluated, you will need to receive training to ensure that you
are able to use the recommended adaptive driving equipment properly, and can be safe on the
road. It is important to seek out an agency with experience in evaluating and training drivers
with SCI, and that the staff have up-to-date knowledge of the options available for adaptive driving equipment, as well as expertise and skill as a driver trainer.
Listed below are several agencies that provide evaluation of driving capabilities, as well as
behind the wheel training. You will also find a listing of dealers that install adaptive equipment
in vehicles, in addition to agencies to contact for information on financial reimbursement for
vehicle modifications.
DRIVER ASSESSMENT FACILITIES
Adaptive Driving Aid
800/371-4243
408/866-7237
3155 Williamsburg Dr.
San Jose, CA 95117
Sam Graf: Rehabilitation Driver Consultant
• Driver evaluations based out of the client’s home and, when appropriate,
using the client’s own car
• Driver evaluation, education and training
• Mobile on-site evaluations from Santa Rosa to Monterey
• Adaptive equipment installation
• Prospective clients must have a driver’s license or temporary permit
Apex Driving School
415/252-7760
P.O. Box 22342
• Driver assessment/evaluation, education and training
• Classroom instruction
• On road instruction
• Licensing assistance
7-1
7. Driving Evaluation and Equipment
Association for Driver Rehabilitation Specialists
608/884-8833
FAX: 608/884-4851
P.O. Box 49
Edgerton, WI 53534
Website: <www.driver-ed.org>
• Professional organization
• Consumers can search membership directory database to locate
adaptive driving specialists in the area which they live
Chrysler Automobility Program
800/922-3826
P.O. Box 3124
Bloomfield Hills, MI 48302-3124
• Purchase or lease an eligible Chrysler, Plymouth, Dodge, or Jeep vehicle and the Chrysler
Motors Corporation will reimburse you for a portion of the conversion costs
• Please call for details
John Muir Therapy
925/947-5300 x33423
1981 N. Broadway, Suite 180
Walnut Creek, CA 94596
• Two part program: Classroom and road training
• Physician referral required
• Must have current driver’s license
Santa Clara Valley Medical Center Adaptive Driving Evaluation Program
408/885-5613
751 S. Bascom Ave.
San Jose, CA 95128
• Wheelchair/scooter evaluations
• Attendant operated van assessments
• Car assessments
• Van assessments, including high tech
• Driver training
• Certified to provide services to individuals who drive from a wheelchair
7-2
Veterans Administration Medical Center Palo Alto
Physical Medicine and Rehabilitation Department
650/493-5000 x65624
3801 Miranda Ave.
Palo Alto, CA 94304
• Veterans only
• Must register with the VA hospital
• Driver assessment/evaluation, education, and training
• Device prescription
• Classroom and on-road instruction
MOBILITY EQUIPMENT INSTALLERS
Access Development Co.
707/585-6226
FAX: 707/585-6229
323 Sutton Place
Santa Rosa, CA 95407
Website: <www.access-development.com>
• Hand controls, wheelchair carriers & lifts
• Passenger vans and vehicle modifications
• Installation and repair
Access Options, Inc.
408/722-6804
FAX: 408/722-0236
49 Hangar Way, Suite 1
San Jose Location:
1255 Alma Court
San Jose, CA 95112
Website: <www.accessoptions.com>
Adaptive Driving Aid
800/371-4243
408/866-7237
3155 Williamsburg Dr.
San Jose, CA 95117
Sam Graf: Rehabilitation Driver Consultant
• Vehicle modifications
7-3
Adaptive Driving Systems
805/549-7996
3534 Empleo
• Vehicle modifications and adaptive equipment
Driving Specialties Ltd.
Website: <www.drivingspecialities.com>
• Offers vehicle conversions with adaptive equipment
707/553-1515
215 Commercial St.
Vallejo, CA 94589
559/252-9738
2727 N. Grove Industrial Dr., Suite 141-B
Fresno, CA 93727
916/635-2765
2216 Cemo Circle, Suite A
Rancho Cordova, CA 95670
Freedom Access
916/338-4094
5710 Auburn Blvd., Suite 10
• Vehicle conversions with adaptive equipment
• Home modifications including grab bars, lifts for stairs, etc.
Mobility Systems, Inc.
510/540-0295
800/943-7333
1715 64th St.
Emeryville, CA 94608
Website: <www.mobilitysystems.com>
7-4
New Ability Driving Systems
800/287-LIFT
408/435-8005
2470 Kruse Dr.
San Jose, CA 95131
• Vehicle conversion with adaptive equipment
Nor-Cal Mobility
800/225-7361
916/893-1111
1298 Nord Ave
Chico, CA 95926
Website: <www.norcalmobility.com>
• Offers vehicle conversions with adaptive equipment and lifts
South Bay Mobility
408/988-1926
FAX: 408/988-1914
1940 Lafayette St., Unit 1
• Vehicle modifications
DRIVER ASSESSMENT ASSOCIATIONS
American Driver and Traffic Safety Education Association (ADTSEA)
Indiana University of PA, Highway Safety Center, R & P Building
Indiana, PA 15702-1093
• Professional organization which represents traffic safety educators
American Occupational Therapy Association (AOTA)
800/729-2682
4720 Montgomery Lane
Bethesda, MD 20824-1220
Website: <www.aota.org>
7-5
608/884-8833
FAX: 608/884-4851
P.O. Box 49
Edgerton, WI 53534
Website: <www.driver-ed.org>
• Consumers can search membership directory database to locate
adaptive driving specialists in the area which they live
VEHICLE MODIFICATION REIMBURSEMENT
Chrysler Automobility Program
800/255-9877
P.O. Box 3124
Bloomfield Hills, MI 48302-3124
Website: <www.automobility.com>
• See Chapter 24 for an office located nearest to where you live
Ford Motor Corporation Mobility Motoring Program
800/952-2248
P.O. Box 529
Bloomfield Hills, MI 48302
Website: <www.ford.com/showrooms/pavilion/>
General Motors Corporation Mobility Assistance Center
800/323-9935
100 Renaissance Center
P.O. Box 100
Detroit, MI 48265-1000
Website: <www.gm.com>
Saturn Mobility
800/553-6000
Website: <www.saturncars.com>
Volkswagon Mobility Access Program
800/444-8987
3800 Hamlin Rd.
Auburn Hills, MI 48326
7-6
BOOKS
The Disabled Drivers Mobility Guide
800/926-4222
AAA Traffic Safety and Engineering
1000 AAA Drive
Heathrow, FL 32746-5080
VIDEOS
The Road to Independence: Adapted Driving Options
404/350-7760
c/o The Assistive Technology Center
Shepherd Center
2020 Peachtree Rd., NW
Atlanta, GA 30309
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Durable medical equipment (DME) refers to specialized equipment that is necessary for individuals with SCI to maximize their independence. DME includes wheelchairs, wheelchair cushions
and accessories, positioning equipment, bath equipment, standing frames, walkers, hand splints
and leg braces.
Before you purchase any equipment such as a wheelchair cushion, new wheelchair, splint or
brace, it is important to be evaluated by a therapist to determine the appropriate equipment to
meet your individual needs. With your therapist, you should be given an opportunity to try out
various types of equipment to experiment with different fits and styles before making a decision
or purchase.
When seeking out a DME vendor, it is important to look for a qualified equipment specialist who
has experience with people with SCI. The vendor should have an awareness of the specific needs
of individuals with SCI, and knowledge of the latest equipment options available.
If problems arise with your durable medical equipment, you should contact the vendor from
whom you purchased the equipment. If your manual or electric wheelchair should need servicing,
it is important to have the repairs done by a qualified equipment specialist who has experience
working on custom wheelchairs.
The following is a list of durable medical equipment vendors in the Bay Area. This list is in
no way an endorsement. As with other consumer organizations listed in this resource guide,
several should be investigated before making a DME purchase.
VENDORS
Abba Medical Services, Inc.
408/371-8747
FAX: 408/371-8743
2634 Union Ave.
San Jose, CA 95124
Website: <www.abbamed.com>
• Dealer for all major brands of mobility aids
• On site repair facility
• Provides custom equipment
Brannons Medical
408/448-3000
FAX: 408/448-2076
2052 Lincoln Ave.
San Jose, CA 95125
• Rents and sell medical supplies
8-1
8. Durable Medical Equipment
American Medical and Equipment Supply, Inc.
408/559-5800
FAX: 408/559-5808
3725 Union Ave.
San Jose, CA 95124
• Full service repair department
• Custom fitted wheelchairs and seating system
• Provide evaluation equipment for therapists and clients
• Pick up and delivery available
• Member of National Registry of Rehab Technology Suppliers
Apria Healthcare, Inc.
408/432-0950
2040 Corporate Court
San Jose, CA 95131
• Durable medical equipment provider
California Rehabilitation Equipment
408/739-5750
FAX: 408/739-6408
295 E. Washington Ave.
Sunnyvale, CA 94068
Website: <www.ca-rehab.com>
• Multi-service provider
• In-house repair facility
• Rental equipment
• Special orders
• Free estimates
• Installation of home access equipment
Lincare, Inc.
408/286-1026
800/801-9001
1370 Tully Rd., Suite 504
San Jose, CA 95122
• Provide oxygen, C-packs, and wheelchairs
M & M Home Medical
408/747-0181
1237 Reamwood Ave.
Sunnyvale, CA 94088
• Medical equipment provider
8-2
National Seating and Mobility, Inc.
408/920-0390
FAX: 408/920-0392
1226 S. Bascom Ave.
San Jose, CA 95128
• Delivers, adjusts and provides detailed training and instruction on all products
• Participates in patient and family education classes
• Member of California Association of Medical Product Sellers, National Association of Medical
Product Suppliers (NAMES), NAMES-Rehab., Rehabilitation Engineering Society of North
America
• Custom products
Rehab Specialists, Inc.
408/298-5155
650/965-8282
FAX: 650/966-8108
2557 Wyandotte St.
Watsonville Area:
831/724-5544
FAX: 831/724-3334
446 Westridge Dr.
• Provides services and repairs at both locations
• Mobile units provide scheduled and emergency service calls
• In-home demonstrations of rehab equipment
Shield Healthcare
800/675-8840
4701 Doyle St., Suite 15
Emeryville, CA 94608
• Carry medical supplies, including disposable supplies
Western Rehab Systems
800/675-7342
1014 Broadway
Vallejo, CA 94590
• Carry medical supplies for in-home use
8-3
Wheelchairs of Berkeley
510/549-8727
FAX: 510/540-1210
2911 Shattuck Ave.
Berkeley, CA 94705
San Francisco Area:
415/284-9424
FAX: 415/512-8845
590 Howard St.
• Customization of products
• Free pickup service and delivery
• Repair
• Demonstration equipment available
SPLINTS AND BRACES
Center for Independent Rehabilitative Services (CIRS)
408/995-0144
FAX: 408/995-5199
San Jose, CA 95128
• Fabricates and repairs upper and lower extremity splints and braces
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Education Resources
Education is often an important issue for individuals with SCI. Frequently, the person with spinal
cord injury is young and may not have completed his or her education. Job retraining may be
necessary if the individual is unable to pursue the same type of employment he or she had prior
to injury.
For those individuals with SCI interested in obtaining a high school diploma or GED, the first step
is to contact Adult Education in the area in which you live. If you do not want to obtain a GED
and do not have a high school diploma, community college may be an option.
The community colleges have taken the lead in providing educational resources for people with
physical impairments, including those with spinal cord injuries, through their Disabled Students
Programs. Through Disabled Student’s services at most colleges and universities students can
receive assistance with notetaking, tutors, and can obtain materials to help get the most out of
their education.
English as a Second Language (ESL) classes are provided in several different types of settings
such as schools, cultural centers, and community organizations. Local classes can be found
through many Adult Education programs.
In addition to the resources listed below, the California State Department of Rehabilitation is an
excellent resource for information on assistance in pursuing your educational goals. See Chapter
24 for more information on the State Department of Rehabilitation.
Also included in this chapter is a section on Patient Education Resources. Included in this listing
are several excellent SCI self-care manuals, as well as websites that feature various topics related
to SCI education.
Heath Resource Center
800/544-3284
202/939-9320
One Dupont Circle N.W., #800
Website: <www.heath-resource-center.org>
• Collects and disseminates information about post-secondary education
for people with disabilities
Independence Adult Education Center
408/928-9300
625 Educational Park
San Jose, CA 95128
Website: <www.aenet.esuhsd.org>
• GED, ESL, literacy and vocational programs
9-1
9. Education Resources
Kings Regional Occupation Program
559/589-7026
FAX: 559/589-7007
1144 West Lacey Blvd.
Hanford, CA 93230
Website: <www.kings.k12.ca.us>
• Classes in vocational education
831/753-4268
20 Sherwood Place
Salinas, CA 93906
• ESL, GED, HS diploma, exercise, arts and crafts
San Jose Adult Education Center
Campbell: 408/947-2300
Downtown San Jose: 408/947-2311
Metropolitan: 408/723-6450
Eastside Adult Education: 408/923-2306
Website: <www.metroed.net>
• English as a Second Language classes, high school completion
and general education classes
Santa Clara Library Literacy Alliance
408/453-6711
1290 Ridder Park Dr., Mail Code 206
San Jose, CA 95131
• Project works with both immigrants (without English skills)
and native English speakers who want to learn to read
• Act mostly as a referral service
• Also have ESL classes
ENGLISH AS A SECOND LANGUAGE CLASSES
408/975-2730
2400 Moorpark Ave., Ste 300
San Jose, CA 95128
• Senior and youth ESL
9-2
Casa Macsa
408/928-1155
130 N. Jackson Ave.
San Jose, CA 95116
Economic and Social Opportunities, Inc.
408/971-0888
P.O. Box 610968
San Jose, CA 95161
• Provide ESL classes to facilitate entry into a job training program
• Remedial ESL classes
Literacy Alliance
Literacy Hotline: 408/453-6711
100 Skyport Dr., #206
San Jose, CA 95110
• Hotline program that helps both immigrants and native English speakers
• Work with local literacy programs through the local libraries, referring to programs in the
client’s local area
• ESL classes
Vietnamese Voluntary Foundation (VIVO)
408/532-7755
FAX: 408/532-1699
2260 Quimby Rd.
San Jose, CA 95122
• ESL classes for refugees and also translator services for Vietnamese
• Fee for service basis
• Primarily used for lawyers and other professionals
9-3
DISABLED STUDENT SERVICES
The purpose of disabled student services is to provide academic and personal support for students with disabilities. Their goal is to make campus classes, facilities and services accessible to
students with disabilities and to promote both student independence and “barrier free” education.
COMMUNITY COLLEGE HIGH TECH CENTER SITES IN NORTHERN CALIFORNIA
High Tech Centers have computers and training.
Alan Hancock
805/922-6966 x 3380
FAX: 805/928-7905
800 South College Dr.
Santa Maria, CA 93454-6368
Canada College
Disabled Students’ Program
650/306-3490
FAX: 650/306-3457
4200 Farm Hill Blvd.
Redwood City, CA 94061-1099
American River College
916/484-8791
FAX: 916/484-8674
4700 College Oak Dr.
Chabot College
510/786-6660
FAX: 510/782-9315
25555 Hesperian Blvd.
Hayward, CA 94545-2447
Butte College
530/895-2455
FAX: 530/895-2235
3536 Butte Campus Dr.
Chico, CA 95965-8303
Cabrillo College
831/479-6379
FAX: 831/479-6393
6500 Soquel Drive
Aptos, CA 95003-3198
9-4
City College of San Francisco
415/452-5482
FAX: 415/452-5565
50 Phelan Ave., R323
San Francisco, CA 94112-1898
College of Alameda
510/748-2328
FAX: 510/769-6019
555 Atlantic Ave.
Alameda, CA 94501-2109
Columbia College
209/588-5132
FAX: 209/588-5104
11600 Columbia College Dr.
Sonora, CA 95370
College of Marin
415/485-9621
FAX: 415/457-4791
885 College Ave.
Kentfield, CA 94904-2551
College of San Mateo
415/574-6118
FAX: 415/574-6680
1700 West Hillsdale Blvd. , Bldg 16, Room 151
San Mateo, CA 94402-3757
College of the Redwoods
Disabled Students’ Services
707/476-4280
FAX: 707/476-4418
7351 Tompkins Hills Rd.
Eureka, CA 95501
College of the Sequoias
Disabled Students’ Services Program
209/730-3805
FAX: 209/730-3803
915 So. Mooney Blvd.
Visalia, CA 93291
College of the Siskiyous
530/938-5297
FAX: 530/938-5227
800 College Ave.
Weed, CA 96094-2806
Contra Costa College
510/235-7800 x 220
FAX: 510/236-6768
2600 Mission Bell Dr.
San Pablo, CA 94806-3195
Cosumnes River College
916/688-7275
FAX: 916/688-7330
8401 Center Parkway
Cuesta College
805/546-3148
FAX: 805/546-3930
P.O. Box 8106
San Luis Obispo, CA 93403-8106
De Anza College
High Tech Training Center Program
408/864-8923
FAX: 408/864-5492
21250 Stevens Creek Blvd.
Cupertino, CA 95014-5797
• Assistive Technology Training Center
Diablo Valley College
925/685-1230 x607
FAX: 925/685-1829
321 Golf Club Rd.
Pleasant Hill, CA 94523
9-5
Evergreen Valley College
408/274-7900 x6632
FAX: 408/239-0316
3095 Yerba Buena Rd.
San Jose, CA 95135-1598
Feather River College
530/283-0202 x297
FAX: 530/283-3757
570 Golden Eagle Ave.
Quincy, CA 95971-6023
Foothill College
415/949-7017
FAX: 650/917-1064
12345 El Monte Road
Los Altos Hills, CA 94022-4599
Fresno City College
559/442-8237
559/485-7304
1101 E. University Ave.
Fresno, CA 93741
Gavilan College
408/848-4871
FAX: 408/848-4865
5055 Santa Teresa Blvd.
Gilroy, CA 95020
Hartnell College
831/755-6760
FAX: 831/755-6751
156 Homestead Ave.
Salinas, CA 93901-1697
9-6
Kings River College
209/638-0322
FAX: 209/638-5040
995 North Reed Ave.
Reedley, CA 93654-2099
Lake Tahoe College
530/541-4660 x264
FAX: 530/541-7852
College Drive
South Lake Tahoe, CA 96150-4524
Laney College
510/464-3428
FAX: 510/464-3418
900 Fallon Street
Las Positas College
925/373-4908
FAX: 925/443-0742
3033 Collier Canyon Rd., Bldg. 1500
Livermore, CA 94550-9797
Lassen College
530/251-8895
FAX: 530/257-8964
P.O. Box 3000 Highway 139
Susanville, CA 96130-3000
Mendocino College
707/468-3031
FAX: 707/468-3120
P.O. Box 3000
Ukiah, CA 95482-0300
Merced College
209/384-6155
FAX: 209/384-6013
3600 “M” Street
Merritt College
510/436-2516
FAX: 510/436-2512
12500 Campus Dr.
Oakland, CA 94619
Mission College
Disabled Students Program
408/748-2730
FAX: 408/496-0462
3000 Mission College Blvd.
Modesto Junior College
209/575-6225
FAX: 209/575-6582
435 College Ave.
Modesto, CA 95350
Monterey Peninsula Junior College
831/646-4070
FAX: 831/646-4171
980 Fremont Street
Monterey, CA 93940-4799
Ohlone College
510/659-6140
FAX: 510/659-6040
43600 Mission Blvd.
San Joaquin Delta College
209/954-5330
FAX: 209/954-5600
5151 Pacific Ave.
Stockton, CA 95207-6370
San Jose City College
408/288-3788
FAX: 408/971-36412
2100 Moorpark Ave.
San Jose, CA 95128-2799
Santa Rosa Community College
707/527-4906
FAX: 707/524-1768
1501 Mendocino Ave.
Shasta College
530/225-4710
FAX: 530/225-4968
1065 North Old Oregon Trail
Redding, CA 96049-6006
Sierra College
916/781-0599
FAX: 916/781-0455
5000 Rocklin Rd.
Rocklin, CA 95677-3397
Skyline College
650/738-4280
FAX: 650/738-4260
3300 College Dr.
San Bruno, CA 94066-1698
9-7
Solano Community College
707/864-7256 x301
FAX: 707/864-0361
4000 Suisun Valley Rd.
Suisun, CA 94585-3197
Vista College
510/841-8431 x221
FAX: 510/841-7333
2020 Milvia St.
Berkeley, CA 94704
West Valley College
408/741-2117 x6752
FAX: 408/867-4882
14000 Fruitvale Ave.
Saratoga, CA 95070
Yuba College
530/741-6992
FAX: 530/741-3541
2088 North Beale Rd.
Marysville, CA 95901-7699
UNIVERSITIES
Cal Poly San Luis Obispo
805/756-1395
CSU Bakersfield
661/664-2011
9001 Stockdale Highway
Bakersfield, CA 93311-1099
CSU Chico
530/898-5959
First Street and Normal Ave.
Chico, CA 95929
CSU Fresno
559/278-2811
5241 North Maple Ave.
Fresno, CA 93704
CSU Hayward
510/885-3868
Hayward, CA 94542
CSU Humboldt
707/826-4678
Arcata, CA 95521
CSU Monterey Bay
831/582-3518
100 Campus Center
Seaside, CA 93955
CSU Sacramento
916/278-6955
6000 J Street
San Francisco State University
415/338-2472
1600 Holloway Ave.
9-8
San Jose State University
408/924-6000
One Washington Square
San Jose, CA 95192
University of California, Berkeley
510/642-0518
230 Golden Bear Center
Berkeley, CA 94723
Santa Clara University
408/554-4111
Benson Center 203
University of California, San Francisco
415/476-4318
500 Parnassas Ave, UCSF
Sonoma State University
707/664-2166
1801 East Cotati Ave.
Rohnert Park, CA 94928
University of California, Santa Cruz
831/459-2089
146 Hahn
Santa Cruz, CA 95064
Stanford University
Disability Resource Center
650/723-1066
123 Meyer Library
Stanford University
Stanford, CA 94305
SCI EDUCATIONAL MATERIALS FOR INDIVIDUALS AND FAMILIES
SELF-CARE MANUALS
Pathways to Health: You Do Have A Choice ($7.00)
Kenneth Gerhart
Craig Hospital Research Dept.
303/789-8202
Englewood, CO 80110
• Focuses on making healthy choices for people living with spinal injuries
• Excellent website where 18 Fact Sheets covering various aspects of
spinal cord injury are available free of charge
9-9
800/234-1660
7201 McKinney Circle
Frederick, MD 21704
The Spinal Cord Injury Handbook for Patients and their Families ($15.45)
HealthSouth Press
800/688-0737
9119 Cinnamon Hill
Spinal Network: The Total Wheelchair Resource Book - 3rd Edition ($49.95)
Miramar Communications
800/543-4116
FAX: 310/ 317-9533
P.O. Box 8987
Malibu, CA 90265
Website: <www.newmobility.com>
(713) 797-5944
1333 Moursund B-107
Spinal Cord Injury Homecare Manual
Contact: Marilyn Homick, Patient Education Coordinator
800/424-8200
9-10
713/797-5944
1333 Moursund B-107
• Also available in Spanish
SCI Homecare Manual
408/885-2000
751 S. Bascom Ave.
San Jose, CA 95128
VIDEOTAPES AND SOFTWARE
Take Control: A Multimedia Guide to SCI for Consumers, Family and Staff Education (1998)
501/296-1792
1501 North University, Suite 400
Website: <www.state.ar.us/ascc>
The Return to Yourself (1996)
219/483-2100
3320 N. Clinton
Spinal Cord Injury Network
800/548-2673
707/577-8796
Fax: 707/577-0605
3911 Princeton Dr.
• This organization has a program that loans out informational
videotapes to individuals with SCI and their families free of charge
9-11
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6.
7.
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9.
10.
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13.
14.
15.
16.
17.
18.
19.
20.
21.
22.
23.
24.
25.
26.
A.
Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Fiancial Aid and Assistance
Finances remain a very difficult area for those with SCI. Sometimes the family is already in a
financial crisis when the spinal cord injury occurs. Other times the injury brings on financial
problems by loss of income or the additional burden of medical bills. Whatever the situation, any
assistance that can be found is greatly needed.
This section includes agencies and resources that help people with credit counseling, offer counsel with the various financial difficulties that are often encountered, and agencies that provide
financial benefits counseling (e.g. help with applying for Supplemental Secuity Income (SSI),
Social Security Disability Insurance (SSDI), etc. or appealing adverse determinations). Also included are resources that can help with obtaining MediCal and MediCare.
408/299-5891
FAX: 408/971-3538
720 Empey Way
San Jose, CA 95128
• Medical service up to age 21
• Benefits counseling, direct aid, insurance assistance,
and financial case management
• Santa Clara County office
Christopher Sampson Foundation
303 N. Glenoaks Blvd., Suite 740
Burbank, CA 91502
• Can assist with covering the costs of services and equipment for individuals who have
endured catastrophic injury and are unable to pay for what they need
• Prefer written requests for information on application process
California Consumer Credit Counseling Service
• This service offers money management and counseling for people with credit problems
• Free debt counseling sessions which last about an hour; for this session they need information which must be completed before the client sees a counselor. Counseling sessions may
be done by phone
• Assistance to those clients whose bills are too large by helping set up
a debt repayment plan
Santa Clara Valley Office:
408/988-7881
FAX: 408/988-0911
1825 De la Cruz Blvd., Suite 204
10-1
10. Financial Aid and Assistance
California Consumer Credit Counseling Service (cont.)
East Bay Office:
510/729-6966
333 Hegenberger Rd., Suite 710
San Francisco and the Peninsula Office:
415/788-0288
77 Maiden Lane, Third Floor
Sacramento Office:
916/638-5037
1130 Sun Center Dr., Suite E
Rancho Cordova, CA 95670
Fresno Office:
559/454-1700
4969 East McKinley, Suite 107
Fresno, CA 93727
Mid-Counties Office:
209/956-1170
1776 March Lane, #420
Stockton, CA 95207
North Valley Office:
530/223-6908
5609 Bechelli Lane, Suite 1
Redding, CA 96002
Central Office Disability Advocates
800/660-0449
1012 19th St.
• Advocates for Social Security and SSI claims
10-2
Community Services Agency of Mountain View and Los Altos
650/968-0836
204 Stierlin Rd.
• Senior services
• Financial assistance
Disabled and Alone
Life Services for the Handicapped, Inc.
800/995-0066
212/532-6740
352 Park Ave. South, #703
New York, NY 10010
Website: <www.hsca.org/disabledandalone.html>
• Planning for the disabled following the death of a caregiver
Employment Development Department (EDD)
408/436-5600
FAX: 408/452-7684
SDI Office- San Jose
Mailing: P.O. Box 637, San Jose, CA 95106-0637
Office: 297 West Hedding, San Jose, CA 95110
• EDD administers the State Disability Insurance (SDI) Program
Homeowners and Renters Assistance
California Franchise Tax Board
800/852-5711
TDD: 800/822-6268
• Information on tax options for persons with disabilities
Internal Revenue Service
Office of the Chief Counsel
1111 Constitution Ave., NW, Room 5112
• Tax incentives for improving accessibility (tax credit/deduction)
• Publications and forms:
800/829-3676
TDD: 800/829-4059
• Questions:
800/829-1040
TDD: 800/829-4059
10-3
Life Planning for Persons with Disabilities
916/334-7817
Donald Morford
6801 Silverthorne Circle
• Free seminars
• Life planning (trusts, wills, financial)
• Litigation for issues dealing with life planning
MediCare Information
800/952-8627
• Eligibility information
• Medicare pays for physician visits, ambulance transportation, x-rays, but will not pay for
dentists, hearing aids, or glasses (except for cataracts)
• Medicare will also pay for preventative care, such as mammograms and prenatal care
National Association of Protection and Advocacy
202/408-9514
Office on ADA
US Department of Justice
800/514-0301
P.O. Box 66118
• Answer questions on the American with Disabilities Act
Public Guardian Office (Conservatorship)
408/299-6540
FAX: 408/293-6904
1075 E. Santa Clara St.
San Jose, CA 95116
• Acts as conservators in cases of mental incompetency (decided by Superior Court)
Rehabilitation Services Administration (RSA)
202/442-8400
• Job training for individuals with mental or physical disabilities
10-4
San Mateo County Aging and Adult Services
800/675-8437
225 West 37th Ave.
San Mateo, CA 94403
• Adult Protective Services
• Veterans services
• Case management
• In-home support
Santa Clara County Social Services Department
Information in MediCal, AFDC and food stamps
General Assistance:
408/928-3650
591 North King Rd.
San Jose, CA 95133
North County office:
650/988-6100
100 Moffett Blvd.
Central office:
408/441-5100
1725 Technology Dr.
San Jose, CA 95110
Senter Road office:
408/299-2982
1870 Senter Road
San Jose, CA 95112
East Valley office:
408/928-3100
1670-H Las Plumas Ave., Suite 8
San Jose, CA 95133
South County office:
408/686-8734
80 Highland Ave
San Martin, CA 95046
Mission City office:
408/556-1700
1880 Pruneridge Ave.
Valley Medical Center:
408/299-6393
751 S. Bascom Ave., H-25
San Jose, CA 95128
Social Security and MediCare Information
800/772-1213
TDD: 800/325-0778
Social Security Disability Advocates
800/660-0449
2116 6th Street
• Represent individuals who have been denied benefits
10-5
SSI Advocacy Program
408/928-3640
591 North King Rd.
San Jose, CA 95133
• Social Worker/Advocacy Worker on duty
• Assists disabled General Assistance clients with accessing the Social Security System
U.S. Veterans Administration
800/827-1000
Department of Veteran Affairs Regional Office
Oakland Federal Building
1301 Clay Street
Website: <www.va.gov>
• Offer benefits counseling to veterans
408/295-2656
San Jose, CA 95112
• Provides compensation to victims of crime
800/842-8467
• Legal referrals and information to victims of crime and referrals to local Victim Witness
Assistance Offices for compensation
BOOKS
Financial Aid for the Disabled and Their Families
Reference Service Press
916/939-9620
5000 Windplay Drive, Suite 4
El Dorado Hills, CA 95762
• 350 pages: $40.00
10-6
Dollars for College: The Quick Guide to Financial Aid for Students with Disabilities
Elizabeth Olson
800/306-9942
J.G. Ferguson Publishing Company
200 W. Madison, Suite 300
Chicago, IL 60606
Website: <www.fergpubco.com>
10-7
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24.
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26.
A.
Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Included in this chapter are organizations and agencies that offer services to assist with the
health and medical needs of persons with SCI. These services can range from attendant care
(attendants are those that help with the day-to-day needs of people with disabilities, including
personal care, shopping, housekeeping, driving, laundry, etc.) to nursing care to actual medical
services.
The Independent Living Centers listed in Chapter 13 offer attendant care issues as one of the five
core services they are funded to provide. Most have a department for the express purpose of
assisting individuals with disabilities find and train attendants to do personal services. The
Silicon Valley Independent Living Center in the Santa Clara Valley area has an independent living
specialist dedicated to all the aspects of building and sustaining a working relationship between
the employer (with the disability) and the employee (the attendant).
Alta Bates Rehabilitation Center
510/204-4411
FAX: 510/548-5265
2001 Dwight Way
Berkeley, CA 94704
• Health clinic
408/975-2730
San Jose, CA 95128
• Counseling
408/299-5891
FAX: 408/971-3538
720 Empey Way
San Jose, CA 95128
• Medical services for those injured before the age of 21
Community Hospital and Rehabilitation Center of Los Gatos
408/866-4020
FAX: 408/866-4077
815 Pollard Rd.
Los Gatos, CA 95030
• Inpatient and outpatient rehabilitation
11-1
11. Health Related Services
Easter Seals at Timpany Center
408/295-0228
FAX: 408/275-9858
730 Empey Way
San Jose, CA 95128
• Aquatic physical therapy
• Land therapy
Health Care to the Homeless
408/279-6244
San Jose, CA 95128
• General health screening; preventative care for children
• Perinatal, immunization, information and referral
• Health education
• Social services and case management
In-Home Support Services (IHSS)
408/441-5858
1725 Technology Dr.
San Jose, CA 95110
• Must have MediCal to be eligible for services
• County social services agency program
• Attendant care funding
John Muir Rehabilitation Center
925/988-7595
1601 Ygnacio Valley Rd.
Linkages/Multipurpose Senior Service Program (MSSP)
415/750-4141
Institute on Aging
3626 Geary Blvd.
• Case management for disabled adults over 18
• Careplanning for persons over 65
• Adult daycare
11-2
Medshares - San Jose
408/452-1224
FAX: 408/452-1266
2025 Gateway Place, #260
San Jose, CA 95110
• Intermittent skilled nursing care and attendant care
Medshares - Gilroy
408/848-6825
FAX: 408/848-3956
7855 Wren, Suite D
Gilroy, CA 95020
• Intermittent skilled nursing care and attendant care
Mills Peninsula Hospital
Center for Rehabilitation
650/696-4300
FAX: 650/696-4984
100 So. San Mateo Dr.
San Mateo, CA 94401
Mt. Diablo Facility of Rehabilitation
925/682-6343
490 Golf Club Rd.
Pleasant Hill, CA 94523
• Adult day health care
North Coast Rehabilitation Center
707/542-2771
151 Sotoyome St.
• Inpatient and outpatient services
11-3
Patient Advocate Foundation
800/532-5274
FAX: 757/873-8999
753 Thimble Shoals Blvd., Suite B
Newport News, VA 23606
Website: <www.patientadvocate.org>
• Serves as a liaison between patients and their insurers, employers and other creditors to
help people resolve insurance, job discrimination and/or debt crisis matters resulting from
their illness
REACH
Foothill College Reach Program
650/354-8380
Middlefield Rd.
Palo Alto, CA 94303
• Mobility training classes
• Living skills classes
408/295-9896 x24
San Jose, CA 95128
• Maintains a directory in the Resource Center of physicians who have treated former
SCI patients in areas throughout Northern California
• It is in no way an endorsement of any of the physicians listed
831/753-4268
20 Sherwood Place
Salinas, CA 93906
• Classes in Adaptive Physical Education, Occupational Therapy, Physical Therapy,
and Speech Therapy
11-4
San Jose State University Occupational Therapy Clinic
408/924-3070
1 Washington Square
San Jose, CA 95128
• Occupational therapy services for any physical or psychological disability
• Self-referral or MD referral
• $100.00 per semester (or sliding scale)
• Twice per week, 1 hour, 15 minutes of therapy
• Available September - December and February - May
Rehabilitation Clinic
408/885-5920
FAX: 408/885-4728
San Jose, CA 95128
• Inpatient and outpatient rehabilitation services
• Women’s clinic for women with disabilities
St. Mary’s Hospital Rehabilitation Center
415/750-5744
450 Stanyan St.
• Outpatient rehabilitation
• Orthopedic and sports PT clinic
• Chemical dependency clinic
Stanford University Hospital Rehabilitation Center
650/723-4000
300 Pasteur Dr.
Stanford, CA 94305
Therapy in Your Home
408/358-0201
Los Gatos, CA 95030-6335
Website: <http://members.home.net/TIYH>
• Provide therapy services in your home on a private pay basis
11-5
University of California Davis Medical Center
Rehabilitation Department
916/734-7041
2315 Stockton Blvd.
• Orthotics, psychology, & social services
HOME HEALTH AGENCIES
Alexian Home Care
408/729-2806
FAX: 408/729-2861
1565-D Mabury Rd.
San Jose, CA 95133
Mid Peninsula Home Health
415/949-3029
FAX: 415/949-4317
201 San Antonio Circle, #135
Continue Care
408/374-6655
FAX: 408/374-4347
1390 S. Winchester Blvd.
San Jose, CA 95128
O'Connor Home Health Care
408/947-2724
FAX: 408/947-7299
105 North Bascom Ave, Suite 205
San Jose, CA 95128
Home Health Plus
408/986-1801
FAX: 408/986-0354
2005 De La Cruz Blvd., #271
Olsten Home Health Services
408/261-2801
FAX: 408/961-9202
1101 S. Winchester Blvd., #M250
San Jose, CA 95128
Interim Health Care
408/943-9441
FAX: 408/943-0105
San Jose, CA 95131
Staff Builders Health Care
408/271-1600
FAX: 408/271-1601
1190 South Bascom Ave., Suite 240
San Jose, CA 95128
Matched Caregivers
650/321-2273
FAX: 650/321-1150
211 Town and Country
Palo Alto, CA 94301
Stanford Home Care
650/723-1600
FAX: 650/723-3267
Hoover Pavilion
211 Quarry Rd.
Palo Alto, CA 94305
11-6
Visiting Nurse Association
831/475-8644
FAX: 831/688-1146
1041 41st Ave.
We Care Personal Services
408/998-4457
FAX: 408/998-4486
265 Meridian Ave., Suite 5C
San Jose, CA 95126
LOWER COST HOME HEALTHCARE OPTIONS
Rates as of January 2001.
Continue Care
408/374-6655
• $165.00 shift - 24hrs.
Geriatric Home Care Specialists
408/354-8996
• $15.50 -16.50/hr
Loving Hands Homecare
408/266-8331
• $155.00/day
Special Home Needs
408/985-8666
• $16.00/hr. - 8 hours shift
Valley Health Network
408/254-4650
• $115.00/day - 24hrs.
We Care Personal Services
408/998-4457
• $125.00/day plus meals
11-7
WEBSITES FOR LOCATING PHYSICIANS
American Association of Physical Medicine and Rehabilitation (AAPM&R)
Website: <www.aapmr.org>
• Assists in locating a physiatrist by specialty in your area
American Board of Medical Specialties (ABMS) Certified Doctor Verification Service
Website: <www.certifieddoctor.org>
• Find physicians certified by one or more of the ABMS member boards
Administrators in Medicine (AIM) DocFinder
Website: <www.docboard.org>
• Locate health professionals licensed by AIM’s 20 or so participating medical boards
American Medical Association (AMA) Physician Select On-Line Doctor Finder
Website: <www.ama-assn.org/aps/amahg.htm>
• Find any licensed doctor of medicine or osteopathy
OTHER WEBSITES
National Center on Physical Activity and Disability
Website: <www.ncpad.org>
• Promotes healthy lifestyles for people with disabilities by disseminating the latest information, providing resources, and conducting research on physical activity and disability.
11-8
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Housing remains one of the most vexing and difficult issues for those with SCI. Housing is difficult and expensive for anyone to find, and when one adds complications of having special
needs, accessibility requirements and low income, finding affordable and accessible housing
becomes an even more formidable task. The agencies and organizations listed below can help.
Included in this chapter are agencies and services that can offer help with information or housing referrals. You might begin your search for accessible housing by contacting your local
Independent Living Center (ILC). See Chapter 13 for a listing of ILC’s throughout Northern California.
The ILC staff may keep listings of accessible housing units in the area, or may be able to guide
you to some local publications that have such listings. To locate an ILC near you, contact the
Independent Living Research Utilization Project (ILRU) at The Institute for Rehabilitation and
Research (TIRR), 2323 S. Sheppard, Suite 1000, Houston, TX 77019, 713/520-0232, or the National
Council on Independent Living (NCIL), 1916 Wilson Blvd., Suite 209, Arlington, VA 22201,
703/525-3406.
HOUSING INFORMATION AND REFERRAL
Accessible Space, Inc. (ASI)
651/645-7271
800/466-7722
FAX: 651/645-0541
2550 University Ave., Suite 330
St. Paul, MN 55114
• A non-profit organization that provides accessible, affordable housing and
support services for adults with mobility impairments and/or brain injuries
Aris
408/293-2747
1550 The Alameda, Suite100
San Jose, CA 95126
• AIDS and HIV support agency offering emotional and practical support to
those with AIDS and HIV and their family members
• Shared housing and listings of rooms for rent with other people with HIV/AIDS
408/975-2730
San Jose, CA 95128
• Housing information and referral
12-1
12. Housing Agencies and Resources
California Fair Employment and Housing Department
408/277-1264
• Offers assistance with discrimination and harassment in housing or employment,
including acts of violence and discrimination in public services
Housing Authority of the County of Santa Clara
408/275-8770
FAX: 408/280-0358
505 West Julian St.
San Jose, CA 95110
• This agency provides subsidized rent for qualified individuals
• Currently closed to new applicants due to the large wait list
Housing for Independent People (HIP)
408/283-2200
888 N. First St., Suite 201
San Jose, CA
• Non-profit housing developers for people with special needs,
including those with physical disabilities
• Housing referral
McLaughlin House
408/993-0453
1558 McLaughlin Ave.
San Jose, CA 95122
Contact: Carmen Mestas - Manager
• Shared housing for individuals with SCI
Mid-Peninsula Housing Management
Vivente I
408/279-2706
2400 Enborg Ln.
San Jose, CA 95128
• Accessible apartments - 29 total
• Eligibility requirements: Must be low income and mobility impaired
• Wheelchair dependent
• Must be resident of Santa Clara County and demonstrate the capability
to live independently and manage your own household
12-2
Milpitas Housing Services
408/946-6582
FAX: 408/720-0810
1055 Sunnyvale Saratoga, Suite 3
Sunnyvale, CA 94087
Website: <www.mediate4us.com>
• Dispute resolution between landlord and tenant
• First time homebuyer assistance
• Subsidized housing
Palo Alto Mediation Program
Mountain View: 650/969-0495
Palo Alto: 650/856-4062
430 Sherman Ave., Suite 308
Palo Alto, CA 94306
Website: <www.housing.org>
• Assists in tenant/landlord mediation
National Accessible Apartment Clearinghouse
800/421-1221
201 W. Union St., Suite 220
Website: <www.aptsforrent.com/naac>
• Maintains a national registry of apartment units designed
to accommodate wheelchair users
Project Match
408/287-7121
FAX: 408/287-3764
555 Meridian Ave., Suite C
San Jose, CA 95126
• This program provides referrals for shared housing - matching those persons seeking to
share their home with those who are seeking a place to live
• Must have independent living skills in order to participate in program
Rehabilitation Engineering Research Center on Accessible
and Universal Design in Housing
Website: <www.design.ncsu.edu/cud>
• Federally funded program that conducts research leading to new scientific knowledge and
new or improved methods, procedures and devices to benefit people with disabilities
12-3
Salvation Army Corps
408/720-0420
1161 S. Bernardo
Sunnyvale, CA 94087
Gilroy: 408/848-5373
San Jose: 408/998-2064
• Provides rental assistance
Salvation Army - Social Services
408/282-1165
359 North 4th Street
San Jose, CA 95112
• Rent and utilities assistance
• Emergency food
• Specific zip codes served
408/894-9041
FAX: 408/894-9050
2306 Zanker Rd.
San Jose, CA 95131
• Provides information and referral regarding available, accessible housing options
and a computer list of available housing
• Residential Training Program provides comprehensive independent living skills training in a
live-in situation (single family home). It addresses self-care and homemaking skills, community mobility, personal assistant management, social skills and pre-vocational development
Wheelchair Accessible Home Clearinghouse
610/942-3266
Website: <www.waccess.org>
• Website that lists realtors who specialize in accessible homes
• Classified advertisements listed
12-4
FINANCIAL ASSISTANCE FOR HOMEBUYERS
Fannie Mae Consumer Resource Center
800/7-FANNIE
202/752-7124
Website: <www.fanniemae.com>
• HomeChoice is a single-family mortgage loan developed by Fannie Mae to meet the needs
of low and moderate income individuals with disabilities or those that have a family member with a disability in the household
• Will provide a list of lenders
HOME MODIFICATIONS
Handyman Connection
408/294-5900
1460 Tully Rd.
San Jose, CA
Fremont: 510/440-0199
• Group of retired handymen that will build ramps, install grab bars, etc. for a reasonable rate
BOOKS:
Building For A Lifetime: The Design and Construction of Fully Accessible Homes (1994)
Margaret Wylde, Adrian Baron-Robbin and Sam Clark
The Taunton Press
800/888-8286
Newton, CT 06470-5506
Website: <www.taunton.com>
The Accessible Housing Design File (1991)
Ronald L. Mace
John Wiley and Sons
800/225-5945
One Wiley Dr.
Somerset, NJ 08875
Website: <www.wiley.com>
12-5
Planning for Access: A Guide to Planning and Modifying Your Home (1996)
Eastern PVA Publications Department
800/444-0120
75-20 Astoria Blvd.
Website: <www.epva.org>
Residential Remodeling and Universal Design:
Making Homes More Comfortable and Accessible (1996)
HUD User
800/245-2691
P.O. Box 6091
Rockville, MD 20849
Website: <www.huduser.org>
Ramps and Accessible Thresholds (1997)
ABLEDATA Fact Sheet #27
ABLEDATA
800/227-0216
8455 Colesville Rd.
Website: <www.abledata.com/ramps.htm>
VIDEOTAPES:
Building and Remodeling for Accessibility (1993)
PBS Hometime (Show #4056)
HomeTime Video Publications, Inc.
800/489-9955
4275 Norax Dr.
Chaska, MN 55318
Website: <www.hometime.com>
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A.
Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Independent Living
Independent Living Centers (ILC’s) offer services to all individuals who are disabled, including
information and referral, general counseling, mobility training, attendant care referral, peer support services, advocacy and paralegal assistance and financial counseling. In addition to these
general services, independent living centers also offer a variety of vocational-related services,
including employment counseling, employment readiness assistance, training in specific occupations, and job referral and placement. Some ILC’s also offer residential training programs. For specific information about the services your local independent living center offers, contact the ILC
nearest to where you live. To locate an ILC near you, contact either of the following two organizations: Independent Living Research Utilization Project (ILRU) at 713/520-0232 (<www.ilru.org>)
or National Council on Independent Living (NCIL) at 703/525-3406 (<www.tsbbs08.tnet.com>).
INDEPENDENT LIVING CENTERS
Center for Independence of
the Disabled, Inc.
650/595-0783
FAX: 650/595-0261
875 O’Neill Ave.
Belmont, CA 94002
Central Coast Center for Independent Living
Salinas office:
831/757-2968
FAX: 831/757-5549
234 Capitol St., Ste A
Salinas, CA 95901
Center for Independent Living
209/276-6777
FAX: 209/276-6778
TDD: 209/276-6779
3475 West Shaw, Ste 101
Fresno, CA 93711
Community Resources for Independence
707/528-2745
FAX: 707/528-9477
2999 Cleveland Ave., Suite D
Ukiah Office
707/463-8875
FAX: 707/463-8878
1040 N. State St., Suite E
Ukiah, CA 95482-3414
Center for Independent Living
510/841-4776
FAX: 510/841-6168
2539 Telegraph Ave.
Berkeley, CA 94704
Website: <www.cilberkeley.org>
831/462-8720
FAX: 831/462-8727
1395 41st Ave Suite B
Capitola, CA 95010
Fort Bragg Office
707/964-6714
FAX: 707/964-1761
310 E. Redwood Ave.
Fort Bragg, CA 95437
13-1
13. Independent Living
Community Resources for Independence
Napa Office
707/258-0270
FAX: 707/258-0275
1040 Main St., Suite 301
Napa, CA 94559
Community Resources for Independent
Living, Inc.
510/881-5743
FAX: 510/881-1593
439 A Street
Hayward, CA 94541
Disability Resources Agency for
Independent Living
209/521-7260
FAX: 209/521-4763
221 McHenry Blvd.
Modesto, CA 95354
Website: <www.drail.org>
San Joaquin ILC:
209/477-8143
4555 Precissi Lane
Stockton, CA 95207
Mother Lode ILC:
209/532-0963
975-A Morningstar
Sonora, CA 95370
FREED
800/655-7732
530/272-1732
FAX: 530/272-7793
154 Hughes Rd., Suite1
Grass Valley, CA 95945
13-2
Humboldt Access Project
707/445-8404
FAX: 707/445-9751
812 Sixth Street
Eureka, CA 95501
Independent Living Center of Kern County
805/325-1063
FAX: 805/325-6702
1927 Eye St.
Bakersfield, CA 93301
Independent Living Center
805/963-0595
FAX: 805/963-1350
1927 Eye Street
Santa Barbara, CA 93301
Independent Living Resource Center
805/925-0015
327 East Plaza Drive, #3A
Santa Maria, CA 93454
Independent Living Resource Center of
San Francisco
415/543-6222
FAX: 415/543-6318
649 Mission St., Third Floor
Independent Living Resource of Contra
Costa County
925/363-7293
FAX: 925/363-7296
3200 Clayton Rd.
Concord, CA 94519
INDEPENDENT LIVING CENTERS (continued)
Independent Living Services of Northern
California
530/893-8527
FAX: 530/893-8574
555 Rio Lindo Ave., Suite B
Chico, CA 95926
Independent Living Services of Redding
530/242-8550
1411 Yuba Street
Redding, CA 96001
Marin Center for Independent Living
415/459-6245
FAX: 415/459-7047
710 Fourth Street
San Rafael, CA 94901
Placer Independent Resource Services
530/885-6100
FAX: 530/885-3032
11768 Atwood Rd., Suite 29
Auburn, CA 95603
Resources for Independent Living
916/446-3074
FAX: 916/446-2443
1211 H Street, Suite B
408/894-9041
FAX: 408/894-9050
2306 Zanker Rd.
San Jose, CA 95131
Gilroy office:
408/847-1805
Gilroy, CA 95020
OTHER ORGANIZATIONS
California Foundation for Independent Living Centers (CFILC)
916/325-1690
FAX: 916/325-1699
• Act as advocate for all ILC’s in California (for federal and state issues)
13-3
408/971-0888
408/971-2789
P.O. Box 610968
San Jose, CA 95116
• Home Access Program (home modifications)
• Handyworker Program to do minor home repairs (for home owners only)
• Provide payment assistance for households experiencing energy-related emergencies
713/520-0232
The Institute for Rehabilitation and Research
2323 S. Sheppard, Suite 1000
Houston, TX 77019
Website: <www.ilru.org>
• National center for information training, research and technical assistance
for independent living
National Council on Independent Living (NCIL)
703/525-3406
1916 Wilson Blvd., Suite 209
Arlington, VA 22201
• Training for independent living
• Information on ADA, 704 reports, rural transportation
800/352-1956
408/295-9896
FAX: 408/295-9913
San Jose, CA 95128
Website: <www.tbi-sci.org>
• Community education
• Information and referral service
• InterAct newsletter
• Peer support program
13-4
CAREGIVER RESOURCE CENTERS
Del Mar Caregiver Resource Center
831/424-4359
Intake & Information: 800/624-8304
FAX: 831/459-8138
40 Central Ave.
Salinas, CA 93901
Hollister Office:
800/624-8304
• Family consultation services
Del Oro Caregiver Resource Center
916/971-0893
800/635-0220
5713-A Marconi Ave.
Carmichael, CA 95608
• Support groups
• Financial counsel
• Legal assistance
Family Caregiver Alliance (FCA)
800/445-8106
415/434-3388
Website: <www.caregiver.org>
• Offers support and assistance to caregivers
Redwood Caregiver Resource Center
707/542-0282
800/834-1636
FAX: 707/575-4910
P.O. Box 1556
• Caregiver support
• Legal assistance
• Respite care
13-5
ORGANIZATIONS PROVIDING SERVICE DOGS
Assistance Dog Institute
707/585-0300
FAX: 707/585-0445
P.O. Box 2334
Rohnert Park, CA 94927-2334
Canine Companions for Independence
800/572-BARK
P.O. Box 446
Website: <www.caninecompanions.org>
Delta Society - National Service Dog Center
800/869-6898
289 Perimeter Rd, East
Renton, WA 98044
Independence Dogs, Inc.
610/358-2723
146 State Line Rd.
Chadds Ford, PA 19317
Website: <www.ndept.com/idi
PAWS With A Cause
800/253-PAWS
1235 100th Street, Southeast
Byron Center, MI 49315
Support Dogs, Inc.
314/892-2554
3958 Union Rd.
St. Louis, MO 63125
13-6
Helping Hands - Monkey Helpers for the Disabled
617/787-4419
1505 Commonwealth Ave.
Boston, MA 02135
Website: <www.helpinghandsmonkeys.org>
• Non-profit agency dedicated to improving the lives of individuals with quadriplegia
by training capuchin monkeys to assist them with daily activities
13-7
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A.
Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Individuals with SCI, often as a result of their injury, have problems or issues that require qualified professional advice, ranging from paying for medical services, to ensuring that their rights to
fair housing, employment and access are protected. This chapter includes legal and advocacy
services and books that are available for persons with SCI. The agencies listed below have experience working with disability issues.
Adult Protective Services
408/928-3860
591 N. King Rd.
San Jose, CA 95133
• Advocates for dependent adults
• Abuse reporting agency
American Civil Liberties Union
415/621-2488
1663 Mission St., Suite 460
• Free legal advice on civil liberty issues
Asian Law Alliance
408/287-9710
184 E. Jackson St.
San Jose, CA 95112-5153
• Free legal advice to people of any nationality in Santa Clara County
• Legal representation for immigration, housing, domestic violence and public benefits issues
• Translation services, as available, for people who speak Vietnamese, Chinese, Cantonese,
Mandarin and Laotian
California Rural Legal Assistance
415/777-2752
631 Howard Street, Suite 300
• Assistance with wage claims, unemployment, and state disability
• 15 branches throughout California
Branches:
2115 Kern Street, Suite 370
Fresno, CA 93721
209/441-8721
7949 Wren Ave., Suite B
Gilroy, CA 95021
408/847-1408
14-1
14. Legal and Advocacy Services
California Rural Legal Assistance Branches (cont.)
117 South Lake St.
Madera, CA 93638
209/674-5671
After Hours: 209/674-5672
818 “D” Street
P.O. Box 2600
Marysville, CA 95901
530/742-5191
2424 “K” Street
916/446-7901
3 Williams Rd.
Salinas, CA 93905
831/757-5221
1160 Marsh Street, Suite 114
805/544-7997
Modesto, CA 95354
209/577-3811
2050 G South Broadway
Santa Maria, CA 93454
805/922-4563
215 S. Coast Highway, Suite 201
Oceanside, CA 92054
619/966-0511
725 Farmers Lane, Suite 10
707/528-9941
1732 Spring Street
Paso Robles, CA 93446
805/239-3708
242 N. Sutter, Ste 411
Stockton, CA 95202
209/946-0605
Catholic Charities Immigration Program
408/468-0100
Spanish: 408/944-0691
Vietnamese: 408/944-0362
2625 Zanker Rd, Suite 201
San Jose, CA 95134
• Visas and petitions for low income immigrants
14-2
831/462-8720
FAX: 831/462-8727
1395 41st Ave., Ste B
Capitola, CA 95010
234 Capitol St., Ste A
Salinas, CA 93901
831/757-2968
FAX: 831/757-5549
• Advocacy
Client Assistance Program (CAP)
Dept. of Rehabilitation Ombudsman
916/322-5066
800/952-5544
830 “K” Street Mall, Room 308
• CAP advocates between the consumer and the Department of Rehabilitation to help resolve
problems such as those related to consumer’s rights and responsibilities and personality
conflicts between the consumer and counselor
Disability Rights Advocates
510/451-8644
FAX: 510/451-8511
• Non-profit law center for people with disabilities
• Legal representation for people with disabilities
• Publishes consumer handbooks
14-3
Disability Rights Education of Defense Fund (DREDF)
800/466-4232
202/986-0375
1629 “K” Street, NW, Suite 803
Website: <www.dredf.org>
2212 Sixth Street
Berkeley, CA 94710
510/644-2555
• Information and referral on disability rights, laws and policies
• Legal representation to adults and children with disabilities involving their rights to
employment, education, transportation, housing and access to public accommodation
• ADA training
Friends Outside
408/295-6033
551 Stockton Ave.
San Jose, CA 95126
• This organization helps with people who are in jail or prison
415/543-6222
FAX: 415/543-6318
649 Mission Street, 3rd Floor
• Advocacy/human rights
• Attorney referrals
• San Francisco residents
• ADA discrimination
Kato and Feder
415/974-5715
• General civil practice with a focus on the legal issues facing people
who are elderly or disabled
14-4
La Raza Centro Legal
415/575-3500
474 Valencia Street, Suite 295
• Referrals and free legal service for low-income persons
• Spanish speaking
Legal Aid Society of Santa Clara County
408/998-5200
480 N. First St.,
San Jose, CA 95112
Mailing:
P.O. Box 103
San Jose, CA 95103-0103
Website: <www.legalaidsociety.org>
• Immigration services
• Help with housing discrimination
• Family law
• Special education
Robert Ludlow, Esq.
831/475-5592
365 Lake Ave.
P.O. Box 1184
• Attorney with a specialized interest in traumatic brain injury & SCI
408/294-9730
FAX: 408/293-0106
111 W. St. John St., Suite 315
San Jose, CA 95113
• Provides services to those who have a mental health diagnosis, are developmentally disabled, or have a traumatic brain injury
• Patient rights
• Landlord/tenant rights
• Economic rights
14-5
Pacific Disability and Business Technical Assistance Center
800/949-4232
2168 Shattuck Ave., Suite 301
Berkeley, CA 94704
• ADA information line
Patient Advocate Foundation
800/532-5274
FAX: 757/873-8999
753 Thimble Shoals Blvd., Suite B
Newport News, VA 23606
Website: <www.patientadvocate.org>
• Organization serves as a liaison between patients and their insurers, employers
and/or creditors
• Helps people resolve insurance, job discrimination and/or debt crisis matters resulting
from their illness or disability
Protection and Advocacy
800/776-5746
510/839-0811
FAX: 510/839-5780
449 15th, #401
Oakland, CA 94612
• Legal assistance for mental health consumers
• Must have a mental illness or emotional impairment and/or have been released in the last
90 days from a mental health facility
Redwood Caregiver Resource Center
707/542-0282
P.O. Box 1556
• State funded agency that offers counseling, respite care and legal aid
800/675-8437
225 W. 37th Ave.
San Mateo, CA 94403
• Adult Protective Services
• Public guardians
• Case management
• In-home support
14-6
Schneider and McCormac Attorneys at Law
415/440-3440
415/440-3640
FAX: 415/342-0763
1700 California Street, Suite 340
• Civil litigation with an emphasis on disability rights work
• Ask for Social Worker/Advocacy Worker on duty
• Assists disabled General Assistance clients to access Social Security System
408/894-9041
FAX: 408/894-9050
2306 Zanker Rd.
San Jose, CA 95131
Gilroy office:
408/847-1805
Gilroy, CA 95020
• Bilingual (Spanish) and attorney-directed representation in public benefits appeals as well
as individual and system advocacy for an integrative, barrier-free community
U.S. Department of Justice
Civil Rights Division
800/514-0301
• ADA information line available 24 hours/day
• ADA publications available
408/295-2656
777 North First Street, Suite 500
San Jose, CA 95112
• Crisis intervention
• Emergency assistance
• Resource and referral
• In-court support
• Education on the court system
14-7
800/842-8467
University of the Pacific
McGeorge School of Law
3200 5th Ave.
• Legal referrals and information to victims of crime and referrals to local victim Witness
Assistance Offices for compensation under the Victims of Crime Act
BOOKS
Addressing Discrimination Against Persons With Disabilities:
Self-Help and the Civil Rights Lawyer
Contact: Thomas E. Frankovich
415/673-2733
One Daniel Burnham Court, Suite 391C
• Concise 14 page paper that can assist advocates in making factual determinations
• Includes case examples and samples of letters and telephone documentation
Legal Rights for the Catastrophically Ill and Injured
Rosenstein and Romano, P.C.
800/331-4134
610/279-3900
Commonwealth Bank Plaza
2 West Lafayette Street, Suite 120
Norristown, PA 19401
• Book is free
14-8
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
For the individual with SCI who has children, life can pose many unique challenges. The following is a list of organizations that provide services and/or resources for parents with disabilities, or
for parents of children with disabilities.
Beach Center on Families and Disabilities
785/864-7600
3111 Hayworth
Lawrence, KS 66045
• Newsletter
Exceptional Parent Magazine
877/372-7368
P.O. Box 2079
Marion, OH 43305
• $36 for 1 year (12 issues)
• Focus on children with special needs
• Resources and referrals
800/445-8106
415/434-3388
• Support groups
Matrix: A Parent Network and Resource Center
415/499-3877
94 Galli Drive, Suite C
Novato, CA 94949
Website: <www.matrixparents.org>
• Parent to parent support training
15-1
15. Parenting and Family Resources
National Family Caregiver Association
800/896-3650
301/942-6430
10605 Concord Street, Suite 501
Kensington, MD 20895
• Caregiver-to-caregiver peer support network
• Educational materials for caregivers
National Information Center for Children and Youth with Disabilities (NICHCY)
800/695-0285
P.O. Box 1492
Website: <www.nichcy.org>
• Special focus on children (birth to age 22)
• Personal responses to questions from parents and service providers
• Publications and referrals to other organizations and agencies
• Information available in Spanish
• Technical assistance to parent and professional groups
• Resource guides available that describe agencies and organizations that provide
assistance to families of children with disabilities
The PACER Center
4826 Chicago Ave. South
Minneapolis, MN 55417-1098
• Quarterly newsletter with excellent resources and information
Parents Helping Parents
408/727-5775
3041 Olcott St.
Santa Clara, CA 95050-3222
Website: <www.php.org>
• Support groups
• Parenting classes
• Newsletter
15-2
Through the Looking Glass
510/848-1112
2198 6th Street, Suite B
Berkeley, CA 94710
• Parenting with a disability newsletter
• Clinical and supportive services, training and research
• Serves families in which one or more members,
whether parent or child, has a disability or medical issue
University of British Columbia, School of Nursing
Consultation Resource Service for Women with Disabilities
604/822-7444
T206-211 Wesbrook Mall
Vancouver, BC Canada
Well Spouse Foundation
800/838-0879
212/644-1241
P.O. Box 28876
San Diego, CA 92198-0876
• Newsletter that covers counseling issues
ON-LINE RESOURCES
National Father’s Network
Website: <www.fathersnetwork.org>
• Website dedicated to providing support and resources for fathers
and families of children with special needs
• Offers articles, photos, special section for service providers
National Parent Network on Disabilities (NPND)
Website: <www.npnd.org>
• National advocacy group that provides late-breaking news, legislative information,
and other items of interest to parents on its website, by e-mail or FAX
National Transition Alliance for Youth with Disabilities (NTA)
Website: <www.dssc.org/nta>
• Federally funded program that promotes the transition of youth with disabilities
toward desired postschool experience
• Fact sheets, newsletter, model program information and other resources for
educators, employers and parents
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Sibling Support Project
Website: <www.chmc.org.departmt/sibsupp>
• Website packed with resources and ideas for siblings of children with disabilities,
their parents and service providers
• National directory of sibling support programs
• Newsletter
BOOKS
Adaptive Baby Care Equipment:
Guidelines, Prototypes, and Resources (2000)
800/644-2666
510/848-1112
Berkeley, CA 94710
• $30.00
Adaptive Parenting Idea Book (1999)
800/644-2666
510/848-1112
Berkeley, CA 94710
• $30.00
Disability, Pregnancy and Parenthood International
(Quarterly Newsletter)
Arrowhead Publications
1 Chiswick Staithe
London W4 3TP
England
15-4
Families Are Important:
An Early Childhood Guidebook for Families of Young Children with Disabilities (1997)
Maria Anderson
PACER Center
952/838-9000
FAX: 952/838-1099
8161 Normadale
Website: <www.pacer.org>
• $5.00
Inclusion and Parent Advocacy: A Resource Guide (1996)
Julie Klauber and Avery Klauber
Disability Resources, Inc.
516/585-0290
4 Glatter Lane
Centerreach, NY 11720-1032
• $10.00
Mother to Be: A Guide to Pregnancy and Birth for Women with Disabilities (1991)
Demos Medical Publishers
800/532-8663
386 Park Ave. South
New York, NY 10016
Website: <www.demospub.com>
• $29.95 softcover
• $39.95 hardcover
Ordinary Families, Special Children: A Systems Approach to Childhood Disability
800/365-7006
FAX: 212/966-6708
Guilford Publications, Inc
72 Spring St.
New York, NY 10012
Website: <www.guilford.com>
• $19.95 + $4.00 shipping and handling for paperback
• $42.00 + $4.00 shipping and handling for hardcover
15-5
Pregnancy and Women with Spinal Cord Injury (1998)
SCI Information Sheet #14
RRTC Training Office, University of Alabama at Birmingham
205/934-3283
Room 529
1717 6th Ave. South
Reflections from a Mud Puddle: Helping Children Cope and Grow (1998)
Marcella Fisher Anderson
Boyds Mill Press
800/949-7777
910 Church St.
Honesdale, PA 18431
• Collection of short stories and essays that aims to present difficult life situations
within a child-friendly context
• $14.95 softcover + $4.50 postage and handling
The Special- Needs Reading List:
An Annotated Guide to the Best Publications for Parents and Professionals (1998)
Wilma Sweeney
Woodbine House
800/842-7323
301/897-3570
FAX: 301/897-5838
6510 Bells Mill Rd.
Bethesda, MD 20817
Website: <www.woodbinehouse.com>
• Comprehensive guide to books and other resources
• Focuses on specific issues such as disability awareness, sexuality, advocacy
• Describes resources for 23 different disabilities, including resources for siblings and peers
• $18.95 + postage and handling
15-6
Views from Our Shoes:
Growing Up with a Brother or Sister with Special Needs (1997)
Donald Meyer
Woodbine House
800/842-7323
301/897-3570
FAX: 301/897-5838
6510 Bells Mill Rd.
Bethesda, MD 20817
Website: <www.woodbinehouse.com>
• Collection of essays written by children age 4 - 18 which offers their perspectives on what it
is like to grow up with a brother or sister with a disability
• $14.95 softcover + $4.50 postage and handling
NEWSLETTERS
Disability, Pregnancy, and Parenthood International
45 Beech St., 5th Floor
London, England EC2P2LX
Parenting with a Disability
800/644-2666
2198 Sixth St., Suite 100
Berkeley, CA 94710
Parenting with a Disability Bulletin
Center for Independent Living Toronto
205 Richmond St. West, Suite 605
Toronto, Ontario M5V IV3 Canada
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Recreation, Leisure and Entertainment
The individual with a spinal cord injury may no longer be able to pursue recreational activities in
the same way as before the injury, but there are still many options for recreation and leisure.
With a little imagination, creativity and planning, new ways can be found to enjoy favorite leisure
activities.
Swimming is one activity that is readily accessible to individuals with SCI in the local community.
In this section of the resource guide, accessible pools in the area are listed. Also, if there is a specific sport that interests you, listings for various national and local wheelchair sports and recreational organizations are included. Finally, accessible museums and theaters in the Bay area are
described and listed below.
ACCESSIBLE POOLS
COMMUNITY COLLEGE POOLS
Cabrillo College
831/479-6266
6500 Soquel Drive
Aptos, CA 95003
• Outdoor pool
• 82 degrees
• Hoyer lift
De Anza College
408/864-8873
21050 McClellan Rd.
Cupertino, CA 95014
• Outdoor pool
• 82 degrees
• Lift
Gavilan College
408/847-1400 x4741
5055 Santa Teresa
Gilroy, CA 95020
• Outdoor pool
• 83 degrees
• Lift
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16. Recreation, Leisure and Entertainment
San Jose City College
408/288-3746
2100 Moorpark Ave.
San Jose, CA 95128
• Outdoor pool
• 83 degrees
• Lift
Santa Rosa Community College
707/527-4470
1501 Mendocino Ave.
• Indoor pool
• 83 degrees
• Lift
West Valley College
408/867-2200 x2420
14000 Fruitvale Ave.
Saratoga, CA 95070
• Outdoor pool
COMMUNITY POOLS
Betty Wright Swim Center
650/494-1480
3864 Middlefield Rd.
Palo Alto, CA
• Indoor pool
• 88-90 degrees
• Ramp
Community Association for Rehabilitation
650/494-0550
525 East Charleston Rd.
Palo Alto, CA 94306
16-2
16. Recreation, Leisure & Entertainment
Kernes Memorial Pool
831/372-1240
15 Portola Ave.
Monterey, CA 93940
• Indoor pool
• 92 degrees
• Lift
• Special programs
Mills Hospital Pool
650/696-4315
El Camino and Crystal Springs
San Mateo, CA
• Indoor pool
• 90 degrees
• Ramp
RCH, Inc.
415/665-4100
FAX: 415/665-7543
207 Skyline Blvd.
San Francisco, CA
• Indoor pool
• 92 degrees
• Ramp
Salinas Municipal Pool
831/758-7301
920 N. Main St.
Salinas, CA 93906
• Indoor pool
• 85 degrees
• Lift
• Lessons
Timpany Recreation and Aquatics Center
408/267-0200
1730 Empey Way
San Jose, CA 95128
• Indoor pool
• 92 degrees
• Accessible
• Lessons, Exercise, Open Swim
16-3
YMCA POOLS
Central YMCA
408/298-1717
1717 The Alameda
San Jose, CA 95126
• Indoor and outdoor pool
• 85 degrees
• Ramp
El Camino YMCA
650/969-9622
2400 Grant Ave.
• Outdoor pool
• Need to individually transfer
Palo Alto Family YMCA
650/856-9622
3412 Ross Rd.
Palo Alto, CA 94303
• 2 indoor pools
• 85 degrees
• No lifts or ramps
Peninsula Family YMCA
650/286-9622
1877 S. Grant St.
San Mateo, CA 94402
• Indoor pool
• 83 degrees
• Lift
Santa Rosa YMCA
707/545-9622
1111 College Ave.
• 2 indoor pools
• 85-90 degrees
• Lift
16-4
Sequoia YMCA
650/368-4168
1445 Hudson St.
Redwood City, CA
• Indoor pool
• 85 degrees
• No lifts
Southwest YMCA
408/370-1877
13500 Quito Rd.
Saratoga, CA
• Indoor pool
• 82-84 degrees
• Lift
LOCAL SPORTS AND RECREATION RESOURCES
Bay Area Association of Disabled Sailors
415/281-0212
P.O. Box 77212
• Offers people with disabilities and families and friends the opportunity to go sailing, learn to
sail or volunteer to help bring sailing to others
• 3 boats
• $24.00/yr membership includes boat use, club events, including free drop-in classes and a
bimonthly newsletter
Bay Area Outreach and Recreation Program (BORP)
510/849-4663
830 Bancroft Way
Berkeley, CA 94710
Website: <www.borp.org>
• Sports and recreation activities for individuals with disabilities of all ages
• Recreation referrals and consultations
• Serves the San Francisco Bay Area
16-5
City of San Jose Office of Therapeutic Services
408/267-0200
FAX: 408/267-2834
5730 Chambertin Drive
San Jose, CA 95118
Website: <www.ci.san-jose.ca.us/prns)
• Sponsor a number of programs for individuals with disabilities
• Support groups
• Aquatics
• Summer camps for children with disabilities
Creativity Unlimited Diquisto Center
408/559-1847
FAX: 408/559-1842
2715 Union Ave.
San Jose, CA 95124
• Fine arts program for individuals with disabilities
Disabled Sports USA of Northern California
916/722-6447
6060 Sunrise Vista Drive, Suite 2540
Citrus Heights, CA 95610
• Multiple recreational activities
• Publish a newsletter Ventures
Environmental Traveling Companions (ETC)
415/474-7662
Fort Mason Center, Bldg. C
• Offer outdoor programs; whitewater rafting, cross country skiing and sea kayaking
• Also publish newsletter
Guardian Rehabilitation Center
408/356-2191
16412 Los Gatos Blvd.
Los Gatos, CA 95032
• Aquatic therapy
16-6
Redwood City Parks, Recreation & Community Services
Accessible Recreation Activities and Programs (ARAP)
650/780-7311
1120 Roosevelt Ave.
Redwood City, CA 94061-1499
• Offer trips, hikes, fitness classes, movies and lunches to their members
• Publish quarterly ARAP update which details their activities
Red Morton Center
Redwood City Parks, Recreation & Community Services
650/780-7311
1120 Roosevelt Ave.
Redwood City, CA 94063
• Offer trips, fitness classes, dance classes, art classes and other activities
408/894-9041
FAX: 408/894-9050
2306 Zanker Rd.
San Jose, CA 95131
• Group recreational/social activities, events and information regarding
accessible community resources
City of San Jose, Office of Therapeutic Services
408/267-0200
FAX: 408/267-2834
5730 Chambertin Dr.
San Jose, CA 95118-3302
• Wheels on Fire - Junior Wheelchair Sports Team
• Pacific Spartans - Wheelchair Basketball Team
• San Jose Sting Quad Rugby Team
• Water Wheels Swim Team
• San Jose Steamrollers - Power Soccer Team
16-7
NATIONAL SPORTS/RECREATION ASSOCIATIONS
Survivors Art Foundation
P.O. Box 383
Westhampton, NY 11977
Website: <www.survivorsartfoundation.org>
• Non-profit organization aiming to provide entertainment, education, exposure to the arts
and raising public awareness while mainstreaming survivors with physical and mental
disabilities into the arts
AMPUTEE SPORTS
Disabled Sports USA
301/217-0960
451 Hungerford Dr., Suite 100
Rockville, MD 20850
Eastern Amputee Athletic Association
516/826-8340
2080 Ennabrock Rd.
North Bellmore, NY 11710
ARCHERY
Wheelchair Archery, USA
5295 Highway 78, Suite D
P.O. Box 204
Stone Mountain, GA 30087
BASKETBALL
Canadian Wheelchair Basketball Association
613/841-1824
1600 James Naismith Dr.
Gloucester, Ontario K1B5N4
Website: <www.cwba.ca>
National Wheelchair Basketball Association
Website: <www.nwba.org>
16-8
BOWLING
American Wheelchair Bowling Association
954/491-2886
6264 N. Andrews
Ft. Lauderdale, FL 33309
GOLF
Association of Disabled American Golfers
303/922-5228
FAX: 303/922-5257
P.O. Box 280649
Lakewood, CO 80228-0649
National Amputee Golf Association
800/633-NAGA
P.O. Box 5801
Coralville, IA 52241-5801
MULTISPORT
Canadian Wheelchair Sports Association
613/841-1824
1600 James Naismith Dr.
Gloucester, Ontario K1B5N4
Website: <www.cwba.ca>
Disabled Sports USA
301/217-0960
Rockville, MD 20850
U.S. Cerebral Palsy Athletic Association
401/874-7465
251 W. Independence Way
Kingston, RI 02881
Website: <www.uscpaa.org>
16-9
Wheelchair Sports, USA
719/574-1150
3595 E. Fountain Blvd., Suite L-1
Colorado Springs, CO 80910
Website: <www.wsusa.org>
QUAD SPORTS
Power Soccer
Bay Area Outreach Recreation Program
510/849-4663
830 Bancroft Way
Berkeley, CA 94710
Website: <www.pinter.com/BORP>
RACQUET SPORTS
National Foundation of Wheelchair Tennis
949/361-3663
940 Calle Amanecer, Suite B
San Clemente, CA 92672
RECREATION
American Handcycle Association
619/596-1986
1744 Pepper Villa Dr.
El Cajon, CA 92021-1214
North American Riding for the Handicapped Association
800/369-RIDE
P.O. Box 33150
Denver, CO 80233
Website: <www.narha.org>
Parapalegics On Independent Nature Trips (POINT)
214/827-7404
4144 N. Central Expy., Suite 515
Dallas, TX 75204
16-10
ROAD RACING
International Wheelchair Road Racers Club, Inc.
203/967-2231
30 Myano Ln.
Stamford, CT 06902
SKIING
Disabled Sports USA
301/217-0960
Rockville, MD 20850
U.S. Disabled Ski Team
435/649-9090
P.O. Box 100
Park City, UT 84060
Website: <www.usskiteam.com>
SOFTBALL
National Wheelchair Softball Association
651/437-1792
1616 Todd Ct.
Hastings, MN 55033
TRACK AND FIELD
Wheelchair Athletics of the USA
203/967-2231
30 Myano Ln.
Stamford, CT 06902
16-11
WATER SPORTS/RECREATION
American Canoe Association
703/451-0141
7432 Alban Station Blvd., Suite B-232
Springfield, VA 22150
Website: <www.paddler.org>
Aqua Sports Association for the Physically Challenged
619/953-8777
El Cajon, CA 92021
Handicapped Scuba Association
714/498-6128
1104 El Prado
San Clemente, CA 92672
National Ocean Access Project
Disabled Sports USA
301/217-9843
P.O. Box 10726
Rockville, MD 20849-0726
U.S. Rowing Association
800/315-4769
201 South Capitol Ave., Suite 400
Indianapolis, IN 46225
U.S. Wheelchair Swimming
508/946-1964
229 Miller St.
Middleboro, MA 02346
WEIGHTLIFTING
U.S. Wheelchair Weightlifting Federation
215/945-1964
39 Michael Place
Levittown, PA 19057
16-12
ACCESSIBLE MUSEUMS
Behring Auto Museum
925/736-2277
3700 Blackhawk Plaza Circle
Danville, CA 94506
• Hours: Wed - Sun 10am-5pm
• Admission: $7 adults, $4 students and seniors
• Accessibility: Ramped in front; elevators inside for two floors of exhibits
California Academy of Sciences
415/750-7145
Golden Gate Park
San Francisco, CA
• Hours: Daily 10am-5pm (Summer hours are 9am-6pm)
• Admission: $8.50 adults; $5.50 youth (12-17), students, and seniors; $2.00 children (4-11)
• Accessibility: All exhibits are accessible except the swamp area in the Steinhart Aquarium
• Elevators
California Antique Aircraft Museum
408/683-2290
12777 Murphy Ave.
San Martin, CA 95046
• Hours: T-Th and Sat & Sun 11am-4pm
• Admission: Free, donation requested
• Accessibility: Several buildings
Children’s Discovery Museum
408/298-5437
180 Woz Way
San Jose, CA 95110
Website: <www.cdm.org>
• Hours: T-Sat 10am-5pm, Sat & Sun 11am-4pm; Closed Mondays
• Admission: $6.00 adults, $4.00 children
• Accessibility: Elevators, all exhibits accessible
Cupertino Historical Society Museum
408/973-1495
10185 N. Stelling Rd.
Cupertino, CA 95014
• Hours: Wed-Sat 10am-4pm
• Admission: Free
• Accessibility: Automatic door in front; ground floor exhibits accessible
16-13
Cupertino Nature Museum
408/777-3149
22221 McClellan Rd.
Cupertino, CA 95014
• Hours: Sat 10am-2pm
• Admission: Free
• Accessibility: Ramped in front, exhibits on one level
Monterey Bay Aquarium
831/648-4888
831/648-4800
886 Cannery Row
Monterey, CA
Website: <www.montereybayaquarium.org>
• Hours: Daily 10am-6pm
• Admission: $15.95 adults, $13.95 seniors/students, $7.95 children 3-12 and disabled
• Accessibility: Completely accessible except for the mezzanine level of the sea otter exhibit.
Video monitors display shows/events on this level
• Free wheelchair rental
• Limited disabled parking
Museum of Modern Art
415/357-4000
151 3rd St.
• Hours: T,W,F, Sat, Sun 11am-6pm, Th 11am-9pm
• Admission: $8.00 adults, $5.00 seniors/students
• Accessibility: Ground level entrance, elevators to 4 floors
San Francisco Wax Museum
415/885-4975
Jefferson St.
San Francisco, CA
Website: <www.waxmuseum.com>
• Hours: M-Sun 9am-12 midnight
• Admission: Free for disabled
• Accessible: Recently remodeled to be made accessible
16-14
History Museums of San Jose
408/287-2290
1650 Senter Rd. (Kelly Park)
San Jose, CA 95112
Website: <www.serve.com/sjhistory>
• Hours: T-F 12pm-5pm, Sat & Sun 12pm-5pm
• Admission: $6.00 adults, $5.00 seniors; $4.00 children
• Accessibility: Some buildings accessible
San Jose Museum of Art
408/294-2787
110 S. Market St.
San Jose, CA 95113
• Hours: T-Sun 10am-5pm, Th 10am-8pm
• Admission: $7.00 adults, $4.00 seniors and children
• Accessibility: Ramped on right of building, elevators
The Tech Museum of Innovation
408/294-8324
201 S. Market St.
San Jose, CA
• Hours: Daily 10am-5pm
• Admission: $9.00 adults, $7.00 children
• Accessibility: All exhibits are wheelchair accessible, including the IMAX theatre
• Elevator
Triton Museum of Art
408/247-9340
1505 Warburton Ave.
• Hours: T 10am-9pm, W-Sun 10am-5pm
• Admission: Free
• Accessibility: Accessible- one floor of exhibits is carpeted
ACCESSIBLE THEATRES
American Conservatory Theatre (ACT)
415/834-3200
30 Grant Ave.
• Accessibility: Recently remodeled to be completely accessible
16-15
Berkeley Greek Theatre
510/642-9988
UC Berkeley Campus
Gailey Ave. and Hearst St.
Berkeley, CA
• Tickets: Bass customer service or at box office in person
• Accessibility: Ramped in front, Reserve (back of section) or general seating
Civic Auditorium
415/974-4060
99 Grove St.
• Tickets: Bass customer service
• Accessibility: 24 locations, 6-10 seats each, elevator
Club Figazi
415/421-4222
2678 Green St.
San Francisco, CA
Beach Blanket Babylon
• Accessibility: main floor ramp
Concord Pavilion
925/671-3285
2000 Kirker Pass Rd.
Concord, CA 94521
• Tickets: Bass customer service or Concord Ticket Center
Cow Palace
415/469-6065
2600 Geneva Ave.
Daly City, CA
Website: <www.cowpalace.com>
• Accessibility: Box seats available for wheelchair users
• Tickets: Bass customer service, through the box office, or Tickets.com
• Box office hours: M-F 10am-5pm, Sat 10am-430pm
16-16
Curran Theatre
415/551-2000
445 Geary St.
Website: <www.bestofbroadway-sf.com>
• Accessibility: Main floor only, no accessible restrooms
Davies Symphony Hall
415/864-6000
201 Van Ness Ave.
• Accessibility: main floor and all levels; one attendant seat also
The Filmore
415/346-3000
1805 Geary St.
San Francisco, CA
• Accessibility: Have several places for wheelchairs
• Need to call theater at least two days in advance to let them know you are coming
Flint Center
408/864-8816
De Anza College
21250 Stevens Creek
Cupertino, CA 95014
Golden Gate Theatre
415/551-2000
6th and Market St.
San Francisco, CA
• Accessibility: Main floor only accessible
• Tickets: Call Bass customer service
Marines Memorial Club
415/673-6672
Box Office: 415/771-6900
609 Sutter St.
• Accessibility: yes
16-17
Montgomery Theatre
408/277-3900
W. San Carlos and S. Market
San Jose, CA
• Accessibility: 6 seats in back, main floor
Mountain Winery
408/787-1429
17831 Pierce Rd.
Saratoga, CA 95070
• Accessibility: Hilly. Reserve seating. Accessible by removing folding chair
Orpheum Theatre
415/551-2000
Hyde and Market St.
San Francisco, CA
• Accessibility: No elevator - only main floor is accessible
• Tickets: Bass Customer Service
Paramount Theatre
510/465-6400
2025 Broadway
Oakland, CA
• Accessibility: yes
Redwood Amphitheatre at Paramount’s Great America, Santa Clara
408/988-1776 x8153
• Accessibility: seating in center rear (Sec. W)
San Jose Center for Performing Arts
408/277-3900
255 Almaden Blvd.
San Jose, CA 95113
• Accessibility: 8 seats per performance in row 27 (4 seats and 4 companion seats)
16-18
San Jose Civic Auditorium
408/277-3900
145 W. San Carlos St.
San Jose, CA 95113
• Accessibility: Main Floor seating (changes with each event)
Santa Cruz Civic Auditorium
831/420-5260
307 Church St.
• Accessibility: Seating on main floor
Shoreline Amphitheatre
650/967-3000
Box Office: 650/967-4040
• Accessibility: Top and bottom of reserve section
Theatre on the Square
Box Office: 415/433-9500
450 Post St.
• Accessibility: three seats per show
• Tickets: Through box office
Warfield, The
415/567-2060
982 Market St.
• Accessibility: Main floor and balcony for wheelchair user and one guest
• Tickets: Bass customer service and at door before the show
• Call theater and let them know you are coming
16-19
SPORTING EVENTS
3-Com Park (San Francisco 49ers)
415/467-1994
415/656-4900
Jamestown and Harney Way
San Francisco, CA
Website: <www.sf49ers.com>
• Accessibility: Wheelchair accessible seating available throughout the park on most levels
• Accessible elevator
• Tickets: 49er ticket office (415/656-4900) M-F 9am-5pm, Ticketmaster
Oakland Coliseum (Oakland A’s & Oakland Raiders)
510/569-2121
700 Coliseum Way
Oakland, CA
Website: <www.stadianet.com>
• Accessibility: Wheelchair accessible seating in several areas of the stadium
• Tickets: Coliseum box office M-F 10am-6pm, Sat 10am-4pm, Tickets.com
Pac Bell Park (San Francisco Giants)
415/972-2222
Willie Mays Plaza
San Francisco, CA
Website: <www.sfgiants.com>
• Accessibility: Wheelchair accessible seating available on all levels of the ball park
• Park provides escorts to wheelchair users free of charge to assist with seating and transportation within the ball park. Must call 415/947-3395 to arrange for this service prior to
arriving at the game
• Tickets: Giants box office (415/972-2000) open on game days only, 2 hours prior to game;
Giants Dugout stores
San Jose Arena (San Jose Sharks)
408/287-9200
Santa Clara St. and Autumn St.
San Jose, CA
Website: <www.sjarena.com> or <www.sjsharks.com>
• Accessibility: Wheelchair accessible seating available on all levels for wheelchair user and
one guest. Specify need for wheelchair accessible seating when ordering tickets
• Tickets: San Jose Arena ticket office M-F 9:30am-5:30pm, Sat 9:30am-1pm, Ticketmaster
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Over the past several years, with several high profile individuals sustaining spinal cord injuries,
there has been a lot of attention given to finding a cure for SCI. Many groups representing individuals with SCI have lobbied hard for increased funding for curative research, and as a result
more federal monies have been dedicated to this area of research. There are several excellent
websites with links to other sites providing information on curative research. If you have access
to the Internet, these are an excellent place to start in the process of gathering information.
On a cautionary note, be aware of organizations that claim to cure spinal cord injury, or those
that claim that they can get individuals with SCI to walk again. At this point in time (2001) there
is no cure available for spinal cord injury. Many of the “walking” programs are very costly, most
insurance companies do not pay for such services, and the end result can be both financially and
emotionally devastating. This is not to say that there are not some excellent programs out there,
just beware, and ask a lot of questions before taking such a step.
SCI RESEARCH ORGANIZATIONS
American Paraplegia Society
718/803-3782
FAX: 718/803-0414
75-20 Astoria Blvd.
Jackson Heights, NY 11370
Website: <www.apasci.org>
• Organization dedicated to improving the quality of medical care delivered
to persons with SCI
• Goals are to advance SCI-related patient care, promote research related to
SCI and provide a forum for the review of scientific findings
Californians for Cure
Website: <www.californiansforcure.com>
Contact:
Glenda Berg 707/778-6128
Karen Miner 707/678-6160
Don Reed 510/790-0901
• Group of activists lobbying for state funding for SCI research
• Welcome the involvement of other individuals with SCI
17-1
17. Regeneration and Curative Research
Center for SCI Research
Craig Hospital
303/761-5281
303/789-8490
3425 S. Clarkson Street
Englewood, CO 80110-2899
Website: <www.craig-hospital.org>
800/225-0292
973/379-2690
500 Morris Ave.
Website: <http://paralysis.apacure.org/crf>
• Encourages and supports research to find a cure for paralysis caused by
spinal cord injury and other central nervous system disorders
• Also supports non-profit organizations seeking to improve the quality of life
of people with SCI
Karolinska Institute
011-46-8/728-6400
SE-171-77
Stockholm, Sweden
Website: <www.info.ki.se>
• Large university involved in research ranging from fundamental research
in molecular biology to public health science and care research
Main Office:
800/925-2873
972/248-7100
FAX: 972/248-7313
16415 Addison Rd., Suite 550
Addison, TX 75001
Steve Palermo Chapter
800/513-3700
913/451-3700
FAX: 913/338-0003
Website: <www.kwnpf.org>
• Established to facilitate a cure for paralysis caused by injury to the spinal cord and/or brain
17-2
The Miami Project to Cure Paralysis
800/782-6387
305/243-6001
FAX: 305/243-6017
P.O. Box 106960, Mail Locator R-48
Miami, FL 33101
• Research center dedicated to finding more effective treatments,
and ultimately, a cure for paralysis that results from spinal cord injury
SCI Education and Training Foundation
202/416-7655
801 Eighteenth St. NW
• Committed to providing funds for grants to institutions, agencies and organizations - grants
that will improve the knowledge and abilities of health professionals, people with spinal
cord injury or disease and those who are significant to them
• Annual deadlines for applications are December and June
Reeve Irvine Research Center
949/824-1379
949/824-2676
University of California, Irvine
252 Irvine Hall
Irvine, CA 92697-1379
Website: <www.reeve.uci.edu>
• Supports the study of trauma to the spinal cord and diseases affecting it
• Research emphasizes the development of therapies to promote the recovery and
repair of neurological function
Spinal Cord Research Center
University of Manitoba
436 Basic Sciences Medical Building
730 William Ave.
Winnipeg, Manitoba, Canada
R3E 3J7
Website: <www.scrc.umanitoba.ca>
17-3
Spinal Cord Society
218/739-5252
218/739-5261
FAX: 218/739-5262
Wendell Rd.
Fergus Falls, MN 56537
Website: <http://users.aol.com/scsweb>
• Funds research for spinal cord injuries, provides physician referrals
• Newsletter
Thumbs Up - The Mike Utley Foundation
800/294-4683
602/224-0909
FAX: 602/943-2397
2432 W. Peoria Ave., Suite 1162A
Phoenix, AZ 95029
Website: <www.mikeutley.org>
• The goal of the Foundation is to find a cure for spinal cord injuries
• Committed to providing financial support of selected research, rehabilitation and education
programs on spinal cord injuries
• Provides motivational and emotional support for individuals who have been disabled with
such injuries
SCI REHABILITATION RESEARCH AND TRAINING CENTERS (RRTC’s)
The Rehabilitation Research and Training Centers (RRTC’s) are centers of national excellence.
RRTC’s serve as national and regional resources for providers and individuals with SCI, significant
others, and advocates. RRTC’s carry out research activities by conducting coordinated and
advanced programs of research in rehabilitation, as well as training activities for rehabilitation
personnel. There are three RRTC’s that focus on SCI.
RRTC in Community Integration for Individuals with SCI
Baylor College of Medicine
TIRR
800/732-8124
713/797-5940
FAX: 713/797-5982
• Maintains a database of educational resources on spinal cord injury for people with SCI,
their families and health care providers
17-4
RRTC on Aging with a Spinal Cord Injury
Los Amigos Research and Education Institute, Inc.
562/401-7402
FAX: 562/401-7011
800 West Annex
7601 E. Imperial Hwy
Downey, CA 90242
Website: <www.agingwithdisability.org>
• Federally funded research and training center
RRTC on Secondary Conditions of Spinal Cord Injury
UAB Training Office
800/UAB-8816
205/934-3283
FAX: 205/975-4691
Website: <http:main.uab.edu/show.asp?durki=8762?>
• Federally funded rehabilitation research and training center
RESEARCH RELATED WEBSITES
Collaboration on Repair Discoveries (CORD)
University of British Columbia
Website: <cord.ubc.ca>
• An interactive group of research laboratories dedicated to the study of the developing and
adult nervous system and its repair, and rehabilitation after injury or disease
• Website includes information on how the CORD is organized, scientists and clinicians
involved with organization, and summaries of some the research programs
Cure Paralysis Now
Website: <www.cureparalysis.org>
• Site dedicated to all who are involved with or affected by spinal cord injury, especially
researchers and clinicians in multi-disciplinary fields of study that may relate to the advancement of healing or cure of spinal cord paralysis
17-5
SpineWire
Website: <www.spinewire.com>
• The Spinewire website is an excellent general website for the SCI community
• Includes a special section, called “Wise-wire”, which features frequent briefs from
well-known SCI researcher, Dr. Wise Young
17-6
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
The organizations listed in this chapter provide resource and/or training information relevant to
spinal cord injury for consumers, significant others and professionals working with individuals
with SCI.
Several agencies that focus on the prevention of spinal cord injury are listed, as well as organizations that provide training materials and resources on a consumer and/or professional level.
Finally, several excellent sources for obtaining information on various aspects of SCI, as well as
other disabilities, are included in this section of the resource guide.
For additional information related to training an individual with SCI on aspects of SCI care,
please refer to Chapter 9 (Education Resources) where several excellent SCI self-care manuals, as
well as websites that feature various topics related to SCI education are listed.
American Indian Rehabilitation Research and Training Center
520/523-4791
Institute for Human Development
Northern Arizona University
P.O. Box 5630
Flagstaff, AZ 86011-5630
Website: <www.nau.edu/~ind/>
• Conducts research and training to improve rehabilitation services for American Indians
• Addresses a broad range of issues ranging from determining the needs of American Indians
with disabilities to improving the provision of rehabilitation services
404/355-9772
FAX: 404/355-1826
Atlanta, GA 30309
Website: <www.asia-spinalinjury.org>
• Professional organization for physicians and other clinicians working in the field of spinal
cord injury research, prevention and care delivery
Foundation for Spinal Cord Injury Prevention, Care and Cure
800/342-0330
1310 Ford Building
Detroit, MI 48226
Website: <www.fscip.org>
• Educational group dedicated to the prevention, care and cure of SCI through public awareness, education and funding research
18-1
18. Research and Training Organizations
Head and Spinal Cord Injury Prevention Project
916/453-2000
Shriners Hospital for Crippled Children
2425 Stockton Blvd.
• Provide comprehensive rehab services to children with SCI
800/548-2673
707/577-8796
FAX: 707/577-0605
3911 Princeton Drive
Website: <www.sonic.net/~spinal>
• Non-profit organization that provides information and referral services
• Video lending program
713/520-0232
2323 South Shepherd, Suite 1000
Houston, TX 77019
Website: <www.ilru.org>
• Information and resource materials
• Publications
Center for Injury Prevention
415/821-8209
San Francisco General Hospital
Building One, Rm. 300
Website: <www.trauma.fdn.org>
• Injury Prevention Network newsletter
18-2
800/STANDUP
305/243-6001
1600 Northwest 10th Ave. R-48
Miami, FL 33136
• Comprehensive research center dedicated to finding more effective treatments
and a cure for SCI
• Rehabilitation and clinical programs
• Newsletter
• Information
Model SCI Systems Compendium of Education and Training Materials
800/732-8124
713/797-5945
FAX: 713/797-5982
Houston, TX 77030
• Database containing over 400 educational materials on SCI
• Retrievals of up to 2 subject areas free of charge
National Clearing House of Rehabilitation Training Materials
800/223-5219
Oklahoma State University
5202 W. Richmond Hill Dr.
Stillwater, OK 74078-4080
Website: <www.ncchhrtm.okstate.edu>
• Research materials
800/346-2742
301/562-2400
Silver Springs, MD 20910
Website: <www.naric.com>
• Library and information center on disability and rehabilitation
18-3
219/483-2100
3320 No. Clinton St.
• Provides educational resources to enhance quality of care
Education and Training Foundation
202/416-7655
801 18th Street NW
• Consortium for Spinal Cord Medicine in conjunction with the Paralyzed Veterans of America
Education and Training Foundation had developed clinical practice guidelines for many topics related to SCI such as autonomic dysreflexia, bowel care, etc
• Also help finance, support and distribute other SCI related educational materials
Rehabilitation International
212/420-1500
FAX: 212/505-0871
25 East 21st Street
New York, NY 10010
• Federation of 120 organizations leading disability prevention and rehabilitation service
development in 80 nations
Rehabilitation Research Center for Traumatic Brain and Spinal Cord Injury
Resource Line
800/352-1956 x24
408/295-9895 x24
San Jose, CA 95128
• Free access to information and resources related to spinal cord injury in Northern California
18-4
SCI MODEL SYSTEMS OF CARE
Spinal Cord Injury Model Systems of Care are centers designated by the National Institute of
Disability and Rehabilitation Research (NIDRR). Each of the 16 centers listed below has been recognized for their expertise in the treatment of spinal cord injury. Each has been funded by NIDRR
as Model Systems based on providing a continuum of care which includes five key components:
• Emergency medical services
• Expertise in treating trauma
• Comprehensive rehabilitation program
• Vocational and Psychological counseling services
• Community reintegration services
Model systems also conduct research and collect data relevant to SCI. In order to gain and maintain expertise in treating SCI, designated systems are expected to provide care to a significant
volume of individuals with SCI.
National Institute on Disability and Rehabilitation Research (NIDRR)
202/205-9194
Medical Science Program
M.E. Switzer Building, Room 3430
303 “C” Street
Website: <www.ed.gov/offices/OSERS/NIDRR>
205/934-3450
Birmingham, AL 35294
Rancho Los Amigos Hospital
310/940-7448
Room 130 HB
7601 East Imperial Highway
Downey, CA 90242
408/ 885-2000
408/295-9896
751 S. Bascom Ave.
San Jose, CA 95128
18-5
Craig Hospital
Rocky Mountain SCI Center
303/789-8000
3425 Clarkson Street
Englewood, CO 80110
University of Miami
305/324-3174
P.O. Box 016960, R-64
Miami, FL 33101
Shepherd Center
Georgia Regional SCI Center
404/352-2020
2020 Peachtree Rd., NW
Atlanta, GA 30309
Boston University Medical Center
617/638-7300
1 Boston Medical Center
Boston, MA 02118
University of Michigan
Model SCI Care System
313/936-7175
Physical Medicine and Rehabilitation
RMNI-2A09-0497
300 N. Ingalls Building
Ann Arbor, MI 48109
University of Missouri, Columbia
573/882-8847
One Hospital Drive
Columbia, MO 65212
201/731-3600
18-6
Mount Sinai School of Medicine
212/241-1191
One Gustave Levy Place
Box 1240
New York, NY 10029
Jefferson Medical College
Thomas Jefferson University
215/928-6579
11th & Walnut Streets
Philadelphia, PA 19107
University of Pittsburgh
412/365-4861
3471 Fifth Ave.
Liliane Kaufman Building, Suite 901
Pittsburgh, PA 15213
Medical College of Virginia
804/828-9328
401 N. 12th Street
Richmond, VA 23298
Texas Medical Center
713/797-5910
1333 Moursund Ave.
Houston, TX 77030
University of Washington
Rehabilitation Medical Center
206/543-8171
RJ-30
1959 N.E. Pacific St.
Seattle, WA 98195
18-7
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Resource Directories/Services
This is the chapter to utilize when you have called several agencies for assistance and you find
out they are no longer in business, not providing that particular service any more, or are not
exactly what you are looking for. The resources listed in this chapter maintain relatively up-todate listings on the various services for their particular specialty or population.
The Independent Living Centers (see Chapter 13) also provide information and referral services
for disability-related issues.
RESOURCE DIRECTORIES
Database on Spinal Cord Injury Educational Resources
Published by: The Institute for Rehabilitation and Research (TIRR)
713/797-5944
FAX: 713/797-5982
TIRR
1333 Moursund
• Contains information on videotapes and non-published materials (pamphlets, booklets and
manuals) related to spinal cord injury. A free printout of resources (including title, description, cost, etc) is limited to two areas
• Compendium of all materials is available for $55.00
• Supported by a grant from the National Institute on Disability and Rehabilitation Research
(NIDRR)
Directory of Human Services for Santa Clara County
United Way of Santa Clara County
408/247-1200
1922 The Alameda
San Jose, CA 95126
• $40.00 if picked up
• $45.00 if mailed
Directory of California Respite Resources
Published by: Family Caregiver Alliance (FCA)
415/434-3388
FCA Publications Orders
• Lists locations for caregiver respite
• $15.00 including shipping
19-1
19. Resource Directories and Services
Directory of California Support Groups
Published by: Family Caregiver Alliance (FCA)
415/434-3388
FCA Publications Orders
• $25.00 including shipping
Disability Resources Monthly
Published by: Disability Resources, Inc.
631/585-0290
Four Glatter Lane
Centerreach, NY 11720
• Monthly newsletter that monitors, reviews and reports on resources for independent living
Help Santa Clara County
Directory of Health and Human Services
Website: <www.HelpSCC.org>
• A comprehensive online directory of county-wide government and non-profit services in
Santa Clara County
NARPPS National Directory of Rehabilitation Professionals
Published by: National Association of Rehabilitation Professionals in the Private
Sector (NARPPS)
508/820-8889
1661 Worcester Rd., #203
Framingham, MA 01701
• Used by professionals for referrals
New Mobility Magazine
Published by: No Limits Communications
888/850-0344
P.O. Box 220
Horsham, PA 19044
• Monthly magazine focusing on the needs of individuals who use wheelchairs
• Lots of articles and resource listings pertaining to SCI
• 12 issues per year, $27.95 subscription
19-2
Santa Clara County Multicultural Community Information Directory
(2nd Edition)
Resources for Families and Communities
Published by: JC Publications
408/247-9417
P.O. Box 28613
San Jose, CA 95159
Website: <www.communityhelp.com>
• Lists resources from all aspects of community including government, city,
county, non-profit, church and private sectors
INFORMATION RESOURCES
800/445-8106
415/434-3388
FAX: 415/434-3508
• Organization that serves families and caregivers through education,
research services and advocacy
Information and Referral Services, Inc.
408/345-4532
FAX: 408/243-0285
1245 S. Winchester Blvd., #200
San Jose, CA 95128
• Information and referral for seniors in Santa Clara County
National Spinal Cord Injury Association 800-HelpLine
800/962-9629
301/588-6959
FAX: 301/588-9414
The Zalco Building
19-3
Office of Minority Health Resource Center
800/444-6472
301/587-9704
FAX: 301/589-0884
P.O. Box 37337
Website: <www.omhrc.gov>
• National resource and referral center that collects and distributes information on health statistics, health promotion, preventative health services and health education resources relating to American Indian, Alaska Native, African American, Asian American, Pacific Islander and
Hispanic populations
Job Accommodation Network (JAN)
800/526-7234
P.O. Box 6080
Morgantown, WV 26506-6080
• Job modification information
800/346-2742
301/562-2400
Silver Spring, MD 20910-5633
Website: <www.naric.org>
• Customized data searches to answer questions
Parents Educational and Resource Link Services (PEARLS)
408/277-5415
408/277-5337
4 North 2nd Street
San Jose, CA 95113
• Parenting courses and counseling
408/727-5775
3041 Olcott Street
Website: <www.php.com>
• Support groups, parenting classes, and information and referral services
for parents of children with disabilities
19-4
408/295-9896 x24
800/295-9896 x24
San Jose, CA 95128
• Information and referral services for SCI in Northern California
408/253-1151
510/790-2371
415/321-7789
P.O. Box 8165
• Psychological referrals
United Way First Call for Help
408/248-4636
P.O. Box 2
• Bay Area Information and Retrieval System (BAIRS)
• Health and human services database for Alameda, Contra Costa, Marin, San Francisco,
San Mateo and Santa Clara Counties
Women with Disabilities Resource Center
National Women’s Health Information Center
800/994-9662
202/205-2551
Website: <www.4woman.gov>
• Offers summaries about critical health issues for a variety of disabilities
• Information on federal and state legislation and regulations pertaining to disabled individuals, news about medical research, statistical information, and information for health care professionals on what they can do to improve health care access for women with physical limitations
World Institute on Disability (WID)
510/763-4100
FAX: 510/763-4109
510 16th Street., Suite 100
Oakland, CA 94612
• Disability public policy, advocacy, information and referral
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
This chapter is concerned with agencies that work with special populations: e.g. women, children
and teens, ethnic minorities, high quadriplegics, and veterans. They are arranged below by group
served. Many of these agencies, although they may have a nationality in their name and work
with primarily that population, will work with those from other populations as well.
ASIAN AMERICANS
408/975-2730
San Jose, CA 95128
• Youth center program
• DUI program
• Mental health program
• Senior health project
• Staff includes physicians, psychiatrists, psychologists, social workers, marriage, family & child
counselors, teachers and juvenile justice/recreation specialists
Santa Clara County Asian Law Alliance
408/287-9710
184 E. Jackson St.
San Jose, CA 95112-5153
• Offer free legal advice to people of any nationality in Santa Clara County
• Also offer legal representation in immigration, housing, domestic violence and public benefits areas for limited or non-English speaking individuals
• Translation services, as available, for individuals who speak Vietnamese, Cantonese, Chinese,
Mandarin, Laotian, Korean and Japanese
408/532-7755
FAX: 408/532-1699
2260 Quimby Rd.
San Jose, CA 95122
• Offers four programs; help in applying for General Assistance, employment services to assist
individuals from immigrant backgrounds (all nationalities) to train and find jobs, interpreting
for social services (fee for service) and a youth program for at-risk kids
• English as a second language (ESL) for refugees
20-1
20. Resources for Special Populations
West Valley Japanese-American Senior Center
408/253-0458
1545 Teresita Dr.
San Jose, CA 95129
• Provides services to Japanese residents of the West Valley area who are 70 or older
CHILDREN/TEENS
408/299-5891
FAX: 408/971-3538
720 Empey Way
San Jose, CA 95128
• Medical service up to age 21
Sacramento Branch:
916/653-8271
FAX: 916/653-8271
714 “P” St., Room 350
San Francisco Office:
415/904-9690
415/904-9699
FAX: 415/904-9698
185 Berry St., Lobby 6, Suite 255
Community Solutions
408/779-2113
15850 Concord Circle, Suite B
Morgan Hill, CA 95037
• Counseling, case management
• Drug and alcohol treatment
• Domestic violence shelter and counseling services
Daytop Village
650/592-0866
750 El Camino Real
Belmont, CA 94002
• Residential community for chemically dependent adolescents
20-2
Kara
650/321-5272
457 Kingsley Ave.
Palo Alto, CA 94301
• Bereavement group for children
Kids are Special - Eastfield Ming Quong
408/364-4133
FAX: 408/364-4190
251 Llewellyn Ave.
Campbell, CA 95008-1999
• Children’s and parents’ groups for families with children impacted by
the substance abuse of a parent or caregiver
GAY AND LESBIAN
408/293-2429
175 Stockton Ave.
San Jose, CA 95126
• Offers a support group for physically challenged lesbian, gay, bisexual
and transgender individuals
MINORITY GROUPS
Office of Minority Health Resource Center
800/444-6472
301/587-9704
FAX: 301/589-0884
P.O. Box 37337
Website: <www.omhrc.gov>
• National resource and referral center that collects and distributes information on health statistics, health promotion, preventive health services and health education resources relating
to American Indian, Alaska Native, African American, Asian American, Pacific Islander and
Hispanic populations
20-3
NATIVE AMERICANS
American Indian Education Center
408/615-7008
FAX: 408/937-5265
1320 Civic Center Drive
• Tutoring for grades K-12
Indian Health Center of Santa Clara Valley
Dental Dept: 408/445-3410
Education Dept: 408/445-3430
Human Services: 408/445-3245
Medical Dept: 408/445-3400
Women/infants/children: 408/445-3420
1333 Meridian Ave.
San Jose, CA 95125
• Provides assistance with food and clothing
PARENTS AND FAMILIES
Beach Center On Families and Disabilities
785/864-7600
3111 Hayworth Hall
Lawrence, KS 66045
• Newsletter
Exceptional Children’s Foundation
323/290-2000
3750 Martin Luther King Blvd.
Los Angeles, CA 90008
• Support groups
Exceptional Parent Magazine
877/372-7368
P.O. Box 3000
Denville, NJ 07834
Website: <www.eparent.com>
• Provides info, support, ideas, encouragement and outreach for parents of
children with disabilities (and the professionals that work with them)
20-4
Family Caregiver Alliance
800/445-8106
415/434-3388
FAX: 415/434-3508
• Organization that serves families and caregivers through education,
research services and advocacy
800/695-0285
FAX: 202/884-8441
Box 1492
• Personal responses to questions from parents and service providers, referrals to other organizations and agencies, information searches, technical assistance to parent and professional
groups and a wide variety of resource guides, bibliographies and other publications
• Many publications available in Spanish
415/884-3535
94 Galli Drive, Suite C
Novato, CA 94949
• Parent to parent support training
Parents Educational and Resource Link Services (PEARLS)
408/277-5415
408/277-5337
4 North 2nd Street
San Jose, CA 95113
• Parenting courses and counseling
20-5
408/727-5775
3041 Olcott Street
Website: <www.php.com>
• Support groups, parenting classes, and information and referral services for
parents of children with disabilities
PORTUGESE AMERICANS
Portugese Organization for Social Services and Opportunities (POSSO)
408/293-0877
1115 E. Santa Clara Street
San Jose, CA 95116
• Translation
• Programs for individuals over 60
• Nutrition, brown bag meals, and day trips
SPANISH SPEAKING
Adult & Child Guidance Center of Santa Clara Valley
408/288-6205
FAX: 408/288-6201
380 North First Street, Suite 200
San Jose, CA 95112
408/944-0691
2625 Zanker Rd., Suite 201
San Jose, CA 95134
Website: <www.csj.org>
• Consultation services
• $25.00 non-refundable cost
Disability Assistance Advocates
408/224-6898
1425 Spruance Ct.
San Jose, CA 95128
• Offers bilingual Spanish/English representation for Social Security initial application, reconsideration appeal, and hearings. They charge a percentage of the award, and do not charge
you unless you win
20-6
Mexican American Community Services Agency (MACSA)
408/928-1122
FAX: 408/928-1169
130 N. Jackson Ave.
San Jose, CA 95116
• Adult day care for seniors and job training program
• Referrals to ESL classes
La Raza Centro Legal
415/575-3500
474 Valencia St., Suite 295
• Referrals and free legal services to low-income individuals
VENTILATOR USERS
314/534-0475
Gazette International Networking Institute
4207 Lindell Blvd., Suite 110
St. Louis, MO 63108-2915
• Resource directory guide to health professionals, ventilator and related equipment manufacturers, service and repair facilities
WOMEN
408/288-6205
FAX: 408/288-6201
San Jose, CA 95112
20-7
Breast Health Access for Women with Disabilities (BHAWD)
Alta Bates Summit Medical Center
510/204-4866
FAX: 510/204-5892
2001 Dwight Way, 2nd Floor
Berkeley, CA 94704
Website: <www.bhawd.org>
• Free clinical breast exams and breast self-exam education
• Educational workshops
• Referral to accessible mammography
Planned Parenthood
408/287-7526
1691 The Alameda
San Jose, CA 95126
• HIV testing
• Birth control
• Abortion and premarital appointments
• General medical appts for adults and kids
Rehab. Inst. of Chicago Health Resource For Women
312/238-1051
312/238-8003
FAX: 312/238-1205
345 East Superior Street, Room 106
Chicago, IL 60611
• Ob-Gyn with accessible equipment
• Housing
• PCA referral
• Birth control and prenatal care
• Health and advocacy issues
• Peer support
Support Network for Battered Women
650/940-7850
Crisis Line: 800/572-2782
444 Castro Street, Suite 305
• Domestic violence counseling, help with restraining orders and shelter
for women and children
20-8
UCP of the Golden Gate
510/832-7430
Oakland, CA 94612
Alameda, Contra Costa, San Francisco, Marin counties
• Referrals to women’s health practitioners and clinics who work with women and disabilities
• Coordination of individual and group support, primarily by women with disabilities, about
women’s health issues
• Lending library on women’s health and disability issues and instruction in Ob-Gyn self help
care workshops
Women with Disabilities Resource Center
800/994-9662
202/205-2551
FAX: 703/560-6598
8550 Arlington Blvd., Suite 300
Fairfax, VA 22031
Website: <www.4woman.gov>
• Offers summaries about critical health issues for a variety of disabilities
• Information on federal and state legislation and regulations pertaining to disabled
individuals, news about medical research, statistical information, and information for
health care professionals on what they can do to improve health care access for women
with physical limitations
Women’s Clinic for Women with Disabilities
408/885-5920
FAX: 408/885-4728
San Jose, CA 95128
• Accessible exam rooms with multi-positioning exam table
• Preventative health care
• Educational materials
• Physiatrist, nurse practitioner, and OB-GYN on staff
Women’s Community Clinic
408/287-4090
696 E. Santa Clara St.
San Jose, CA 95112
• Gynecological services
20-9
Books/Newsletters for Women
Women with Physical Disabilities: Achieving and Maintaining Health and Well-Being (1996)
Danuta M. Krotoski, Margaret A. Nosek and Margaret A. Turk
Paul H. Brookes Publishing Co.
800/638-3775
410/337-9580
FAX: 410/337-8539
Website: <www.brookespublishing.com>
P.O. Box 10624
Baltimore, MD 21285-0624
Table Manners:
A Guide to Pelvic Examination for Disabled Women and Health Care Providers
Susan Ferreyra and Katrine Hughes
Planned Parenthood Golden Gate
815 Eddy Street, Suite 300
VETERANS
Bay Area and Western Paralyzed Veterans of America
650/855-9030
FAX: 650/855-9019
3801 Miranda Ave. Bldg. 5, Room 101C
Palo Alto, CA 94304
• Membership organization open to veterans of the armed forces with
spinal cord injury or disease
• Sports programs are open to anyone who has a mobility impairment
California Department of Veterans Affairs
Cal-Vet Farm and Home Loans
800/952-5626
• State Veterans services
• Life disability coverage
• Provides information on ordering Cal-Vet loan program application packets and brochures
20-10
San Jose Veterans Center
408/993-0729
278 North Second Street
San Jose, CA 95112
• Outpatient clinic for veterans
• Veterans readjustment counseling services and psychotherapy
U.S. Veterans Administration
800/827-1000
Department of Veterans Affairs Regional Office
1301 Clay Street, North Tower
• This office provides veteran benefits information
Palo Alto Veterans Administration Medical Center (PAVA)
650/493-5000
3801 Miranda Ave.
Palo Alto, CA 94304
Vets Next Step Center
650/493-5000 x2396
3801 Miranda Ave.
Palo Alto, CA 94304
• Vocational counseling and job placement
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
The Internet has dramatically increased access to information, research and support for everyone, and individuals with spinal cord injury are no exception. The Internet is a well equipped tool
for obtaining information as there are thousands of web sites, databases, mailing lists, chat
rooms and other online resources related to various aspects of spinal cord injury. One thing to
keep in mind when navigating the Net - resources found on the Internet can vary in terms of
accuracy, usefulness, quality and user-friendliness. One way to begin checking into the quality of
information on a given site is to first check Disability Resources’ online FAQ’s (Frequently Asked
Questions) for guidance on evaluating a site (“Evaluating Disability Information on the Internet”,
<www.disabilityresources.org/EVALUATE.html>).
The Internet also provides a wealth of self-help information related to managing one’s own
health. Some of this information is accurate, and some is not. Keep in mind that obtaining information about your health via the Net should not replace, but rather augment, the advice of a
medical professional and/or comprehensive physical exam.
This chapter is designed to assist not only the person with a spinal cord injury in accessing
resources on the Internet, but also family members, caregivers, rehabilitation professionals and
anyone who would like to know more about spinal cord injury.
If you are new to the Net, you might consider starting with <www.learnthenet.com>, an excellent website for those just beginning to access information via the Internet.
As with all of the resources listed in this guide, we do not endorse any of these services nor make any
guarantees regarding the services available at any of these sites. Have fun and happy surfing !!!
INTERNET INDEXES
Indexes (also called Meta sites) are guides to other web sites. Most indexes are organized by
topic and include clickable links to the sites they list. The following indexes are useful in identifying and organizing the wealth of SCI on-line resources.
<www.spinalcord.uab.edu>
• Organizes and links to a wealth of resources such as books, organizations, other web sites on
various topics related to SCI
• Topics include subject areas, such as medical, international and rehab centers, type of content, which include publications, audiovisuals and listings by states and organizations
Virtual Paraplegia
<www.mt.net/~russa/>
• Personal home page of Regina Martin, PhD and Russ Anderson
• Straightforward, categorical approach to SCI web sites
21-1
21. SCI Internet Resources
The DRM WebWatcher - Spinal Cord Injury
<www.disabilityresources.org/SCI.html>
• Listing of the Disability Resources Monthly favorite SCI web sites
DRM Guide to Disability Resources on the Internet
<www.disabilityresources.org>
• Constantly growing guide to the best disability resources online
• Separate pages on over 400 disability related topics, as well as individual guides to agencies
and organizations in each of the 50 states
Healthfinder
<www.healthfinder.org>
• The federal government’s gateway to health and medical information
• Directs the user to selected online publications, databases, web sites, support and self-help
groups, government agencies and non-profit organizations that offer reliable information
National Institutes of Health
<www.nih.gov/health>
• Provides information on where to go to learn more about hundreds of diseases
• Links to many other useful resources
National Library of Medicine
<www.nlm.nih.gov>
• Official site of the National Library of Medicine offers access to more than
40 online databases
• Provides a direct link to Medline, which contains references to numerous
medical papers and abstracts
• Information tends to be technical in nature, but very current and comprehensive
SCI Ring
<www.tbi-sci.org/sciring>
• Links SCI web pages together for easier Internet navigation
DISABILITY AND REHABILITATION SITES
ABLEDATA
<www.abledata.org>
• Online database that contains descriptions and ordering information
for over 24,000 assistive devices
21-2
CanDo.com
<www.cando.com>
• Well designed website for anyone with a disability
• Offers news, channels, shopping, adaptive tools and accessories
Craig Hospital
Rocky Mountain Model Spinal Cord Injury System
<www.craig-hospital.org/rehab/>
• Outstanding set of modular educational tracts covering a variety of topics from osteoporosis
to medications, fatigue, spasticity, personal care assistants and many more
• Also features a health assessment profile for individuals with spinal cord injury called the
WRAP (Wellness and Risk Assessment Profile)
Midwest Regional Spinal Cord Injury Care System
<www.nwu.edu/spine/>
• This site has a unique pictoral representation of the continuum of patient care
for the individual with spinal cord injury
Model Construct for Community Integration in Spinal Cord Injury
<www.mcw.edu/spinal/>
• This site offers a comprehensive bibliography on SCI and information on
how to receive the newsletter, BackWords
• Also lists the collaborative research projects that the Wisconsin system is involved in
Mount Sinai Model Spinal Cord Injury System
<www.mssm.edu/rehab/homepage.html>
• Offers a description of Mt. Sinai’s programs for SCI rehabilitation
Northeast Ohio Regional Spinal Cord Injury System
<www.metrohealth.org/clinical.norscis/default.asp>
• This site contains a good selection of information and some great pictures
• Features Tips and Tidbits section which allows individuals to send in tips
about how to function independently with a disability
University of Washington
Northwest Regional Spinal Cord Injury System
<www.depts.washington.edu/rehab/sci>
• Great site with information and links to other sites of interest
• Spinal Cord Injury Update is an excellent newsletter for both professionals and consumers
21-3
Shepherd Hospital
Georgia Regional Spinal Cord Injury Care System
<www.shepherd.org>
• Offers a wealth of information, including two online newsletters,
Shepherd Clinical Review and Spineline.
<www.naric.com>
• This organization is funded by the National Institute on Disability and Rehabilitation
Research (NIDRR) to serve anyone, professional or layperson, who is interested in disability
and rehabilitation
• Contains information regarding literature, organizations, timely information
and research in 5 databases
• Also lists projects funded by NIDRR
• Web site devoted to providing information on disabilities for families, educators and other
professionals
• Focuses on children and youth (birth to age 22)
• Services include personal responses to specific questions, publications, referrals to other disability organizations and information searches of their own library and databases
• Information also provided in Spanish
New Mobility
<www.newmobility.com>
• Well established cross-disability magazine
• Contains superb articles and a virtual online community
Ourtools.com
<www.ourtools.com>
• Interactive web site providing a mix of information, resources, references, product presentations and online discussion groups to people with physical limitations and their caregivers
• Offers solutions to leading an active lifestyle
• Assistive devices can also be purchased through this web site
Rehab International
<www.rehab-international.org>
• A federation of national and international organizations working for the “prevention of disability, the rehabilitation of people with disabilities and the equalization of opportunities
within society.”
• Composed of 200 organizations in 90 nations across the world
21-4
EMPLOYMENT RELATED SITES
<www.rehab.cahwnet.gov>
• The mission of the Department of Rehab is to “assist Californians with disabilities to obtain
and retain employment and maximize their ability to live independently in the community”
• This website provides information on the Americans with Disabilities Act (ADA) and other
services of the Department of Rehabilitation including education, vocational training, and
job announcements
The Monster Board
<www.monster.com>
Careerpath
<www.careerpath.com>
• These useful sites can help you create an electronic version of your resume for posting or
sending to potential employers
• Also posts job listings
<www.jan.wvu.edu/english/homeus.htm>
• This site includes a host of resources and information regarding employment
for individuals with disabilities
National Job Opportunities - Diversity Direct
<www.jwtworks.com>
• Listing of professional job openings from over a dozen major national corporations
• Job seekers with disabilities can obtain a free copy
ONLINE RESUME/JOB BANKS
The following organizations offer online resume posting and/or job listings for individuals with
disabilities via their websites:
Challenge 2000
<www2.interaccess.com/netown>
Diversity Direct National Job Opportunities Listing
<www.diversitydirect.com>
Independence Bank
<www.ind-bank.org>
21-5
National Business and Disability Council
<www.business-disability.com/home.asp>
New Mobility’s Jobline
<www.newmobility.com/jobline>
University of Minnesota Disability Service Careers Online
<http://disserv3.stu.umn.edu/COL>
LEGAL/ADVOCACY RELATED SITES
Disability Advocacy Clinic
<www.disabilityac.com>
• A “cyberoffice”: which provides non-attorney representatives (paralegals) to assist in SSI and
SSD cases in New Mexico, Colorado, Texas, Arizona and California
• DAC provides a “gateway” between the SSA and claimants with disabilities
• Included in the web site are frequently asked questions (FAQs) regarding SSI/SSD, DAC profile, DAC staff, litigation, DAC links and DAC history
LEISURE, RECREATION AND TRAVEL SITES
ArtDis - Art and Disabilities Home Page
<http://thecity.sfsu.edu/~artdis/>
• Information for artists with disabilities and organizations that are composed of
and/or work for them
• Includes a bulletin, calendar of events, and directory of art centers for people
with disabilities
Accessible Travel
<www.mossresourcenet.org/travel.htm>
• Provided by MossRehab ResourceNet, this is an information service for the traveler with a
disability
• Includes travel tips, travel agencies, information on airlines, trains, and buses, hotels/motels,
van and car rental companies, government resources, newsgroups and mailing lists
Access Tours, Inc.
<www.disabilityproducts.com/accesstours>
• Site geared toward accessible travel
21-6
AccessAble Travel Source
<http://dbserver.access-able.com/agents.cfm>
• Maintains a database of travel agents around the world
Emerging Horizons
<www.emerginghorizons.com>
• Online newsletter about accessible travel
• Consumer oriented newsletter - accepts no advertising in order to present
an unbiased view of accessible travel options
• Features foreign and domestic destinations, accessible lodging, recreation,
travel tips and lots of resources
Follow Me Outdoors
<www.angelfire.com/tx/followmeoutdoors/>
• Site listing fun activities and recreational resources
GORP (Great Outdoors Recreational Program)
<www.gorp.com/gorp/eclectic/disabled.htm>
• Provides information on outdoor resources for people with disabilities
Half the Planet.com
<www.halftheplanet.com>
• Provides access to goods, services and information related to the practical demands
of living with a disability
• Offers a wide range of services including e-commerce, classified advertising, chat, bulletin
boards, links and archives designed for the disabled community
MEDICAL SITES
WebMD
<www.webmd.com>
• One of many sites that provide medical information on a host of different topics
• Also consists of community groups which are linked by common interests
• Great site to ask medical questions, but always check with your physician
before trying a new treatment or remedy
Mayo Health Clinic Health Oasis
<www.mayohealth.org>
• Site operated by the Mayo Clinic
• Comprehensive guide to 8,000 prescription and over-the-counter drugs, including facts on
side effects, drugs that should not be taken simultaneously
21-7
MedicineNet
<www.medicinenet.com>
• This site features a medical dictionary and an index of diseases and treatments
• Edited by doctors for the general public
Medline - PubMed, Internet Grateful Med
<www.nlm.nih.gov/databases/freemedl.html>
• The National Library of Medicine provides two free systems to search
medical topics in the MEDLINE database
• About 11 million references and abstracts are found in this database
Medscape
<www.medscape.com>
• Consumer friendly health news website that provides access to
medical information and news in an easy to read manner
• Also offer the CBS HealthWatch “personal health information and tools”
which allows you to personalize the health information you receive
Pharmaceutical Information Network
<www.pharminfo.com>
• The glossary on this site provides definitions for common and uncommon maladies,
as well as links to other sources
US Food and Drug Administration
<www.fda.gov/cder/drug.htm>
• This site is run by the FDA’s Center for Drug Evaluation and Research
• Provides information on newly approved prescription drugs,
as well as those sold over the counter
SCI SPECIFIC SITES
<www.spinalcord.org>
• Connects the world of SCI and unites available support and resources together
• Individuals living with SCI can read about others who successfully faced
the same challenges
Paralinks
<www.paralinks.net>
• The electronic magazine for people with spinal cord injury
21-8
<www.pva.org>
• Provides links to other SCI related sites, as well as information
about the organization and its activities
The Rehabilitation Research Center for Traumatic Brain and Spinal Cord Injury
<www.tbi-sci.org>
• Homepage for the Model System for TBI & SCI at Santa Clara Valley Medical Center
• Website contains information on the TBI and SCI Projects including community activities,
peer support, research and resources
• The TBIRD (Traumatic Brain Injury Resource Directory) and SCI-FYI (Spinal Cord Injury - For
Your Information) can be accessed through this site
• SCI Ring is also found on this site - a tool which links SCI web pages together and has over
100 sites to explore
Spinewire
<www.spinewire.com>
• Outstanding web page made exclusively for the SCI community
• Features many current articles and SCI-related news pieces
• Also have a special section called “Wise-wire” which features frequent newsbriefs from noted
SCI researcher, Dr. Wise Young
Wheelweb.com
<www.wheelweb.com>
• Exceptional website for individuals with spinal cord injury
• Site is rich with content relevant to SCI
REGENERATION & RESEARCH
The following websites feature SCI cure-related information, such as the latest in
regeneration research efforts, trials, experimental drug treatment for spinal cord
injury, etc.
The Miami Project to Cure Paralysis
<www.miami.edu/miami-project>
Cure Paralysis Now
<www.cureparalysis.org>
Spinal Cord Society
<http://users.aol.com/scsweb>
21-9
OTHER SITES OF INTEREST
Link2Care
<www.Link2Care.net>
• Internet program to support family caregivers
• Provides online information, services and connections to caregiving families on demand,
utilizing existing community services
• Provides access to a personal profile and action plan, an information library, consultation
with medical and legal experts, moderated support groups and a database of local community resources
• Administered by Family Caregiver Alliance
<www.npnd.org>
• Website of a national advocacy group which provides late-breaking news, legislative information, and others items of interest to parents
Wired on Wheels
<www.wiredonwheels.org>
• Website dedicated to sharing information on accessibility
• Lets visitors check a restaurant’s accessibility before they visit
• Consumers can submit their own ratings and reviews
• Site examines such accessibility specifics as parking, bathrooms, service communication,
transportation and physical layout
CHAT SITES
If you are interested in real-time conversation with a real person, you might want to visit a chat
site. There are countless topics and groups available. You can decide to chat in a public auditorium or in a private room for you and another guest.
New Mobility
<www.newmobility.com>
SCI Connection
<www.sciconnection.com>
Talk City
<www.talkcity.com>
• Web site completely devoted to chatting
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
SCI Publications
Included in this chapter of the resource guide are journals and magazines that relate to living
with a disability. Some of the publications listed below are specific to spinal cord injury and others deal with a variety of different disabilities.
The articles included in these publications may relate to new adaptive equipment and wheelchair options, sexuality, relationships, employment, education, legislation and/or attendant care.
Ableware
Maddak Inc.
973/628-7600
6 Industrial Rd.
Pequannock, NJ 07440
• Home health and rehab products for help with daily living
Accent on Living
800/787-8444
P.O. Box 700
• $12 year (4 issues)
• General interest magazine for individuals with physical disabilities
Access to Recreation, Inc.
800/634-4351
8 Sandra Ct.
Newbury Park, CA 91320
• Recreational equipment for the physically challenged
Active Living:
The Health, Fitness and Recreation Magazine for People with a Disability
905/957-6016
FAX: 905/957-6017
2276 Rosedene Rd.
St. Ann’s, ON L0R 1Y0
• Health, fitness, and recreation (just like the title...)
22-1
22. SCI Publications
American Rehabilitation Magazine
Federal Rehabilitation Services Administration
202/205-8296
330 C Street, SW
• 4 issues per year
• $8.00 - subscription
• Information about various programs for individuals with disabilities
Employment in the Mainstream
Mainstream, Inc.
301/891-8777
6930 Carroll Ave., Suite 240
Takoma Park, MD 20912
Website: <www.mainstream-mag.com>
• Information on vocational issues and how they affect individuals with disabilities
InterAct
800/352-1956 x24
408/295-9896 x24
San Jose, CA 95128
• Information on the activities of the Rehab Research Center
International Ventilators User Network News
Gazette International
314/534-0475
FAX: 314/534-0475
4207 Lindell Blvd., #110
St. Louis, MO 63108
• Quarterly
• $17.00
• Covers diverse issues such as travelling, coping, etc.
22-2
New Mobility
No Limits Communications
800/543-4116
888/850-0344 x108
P.O. Box 220
Horsham, PA 19044
23815 Stuart Ranch Rd.
Malibu, CA 90265
Website: <www.newmobility.com>
• 12 issues per year
• $27.95 - subscription
• A magazine for wheelchair users
Paraplegia News
PVA Publications
602/224-0500
2111 E. Highland Ave., Suite 180
Phoenix, AZ 85016-4702
• SCI news, government issues, etc.
Progress in Research
Christopher Reeves Paralysis Foundation
800/225-0292
500 Morris Ave.
Rehabilitation Gazette
Gazette International
314/534-0475
FAX: 314/534-5070
4207 Lindell Blvd. #110
St. Louis, MO 63108
• Semi-annual
• $12.00 subscription
• A general disability newsletter dealing with such issues as accessibility,
resources, government, etc.
22-3
Sports and Spokes
PVA Publications
602/224-0500
2111 E. Highland Ave., Suite 180
Phoenix, AZ 85016-4702
• Lists wheelchair sporting events
Ventures
916/722-6447
6060 Sunrise Vista Dr., Suite 2540
Citrus Heights, CA 95610
• A biannual newsletter covering disabled sports
WE Magazine
800/WE-MAG26
372 Central Park West, Suite 6B
New York, NY 10025
Website: <www.wemagazine.com>
• A lifestyle magazine for people with disabilities, their families, and friends
BOOKS AND MANUALS
There are several excellent resource manuals for individuals with spinal cord injury. Some of
these list resources, both on the national and local level, and others are compiled of general
information pertinent to spinal cord injury. The self-care manuals listed below can be useful
when training personal care attendants, as they have detailed chapters, which are often illustrated, that cover various aspects of self-care including bowel, bladder, respiratory and skin care, as
well as issues pertaining to sexuality, psychological considerations and attendant care. The
National Spinal Cord Injury Association, New Mobility magazine, and the University of Alabama
at Birmingham website are great resources for the most recent books, manuals, pamphlets and
booklets related to SCI.
National Resource Directory
800/962-9629
301/588-6959
FAX: 301/588-9414
The Zalco Building
22-4
Pathways to Health:
You Do Have a Choice (2000)
Kenneth A Gerhart
303/789-8202
Englewood, CO 80110
• $7.00
• Focuses on making healthy choices
Spinal Cord Injury - For Your Information:
A Guide to Resources for Individuals with Spinal Cord Injury (2nd Edition)
800/352-1956 x24
408/295-9896 x24
San Jose, CA 95128
Website: <www.tbi-sci.org/scifyi>
• Yes, you are reading the SCI-FYI right now
• Excellent website where 18 Fact Sheets covering various aspects of
spinal cord injury are available free of charge.
800/234-1660
7201 McKinney Circle
Frederick, MD 21704
The Spinal Cord Injury Handbook for Patients and their Families ($15.45)
HealthSouth Press
800/688-0737
9119 Cinnamon Hill
22-5
713/797-5944
1333 Moursund B-107
SCI Homecare Manual
408/885-2000
751 S. Bascom Ave.
San Jose, CA 95128
Taking Care of Yourself While Providing Care (2000)
Richard Holicky
303/789-8308
Englewood, CO 80110
• A guide for those who assist and care for their spouses, parents, and other loved ones who
have spinal cord injuries
800/424-8200
713/797-5944
1333 Moursund B-107
• Also available in Spanish
22-6
VIDEOTAPES AND SOFTWARE
Take Control: A Multimedia Guide to SCI for Consumers, Family and Staff Education (1998)
501/296-1792
1501 North University, Suite 400
Website: <www.state.ar.us/ascc>
The Return to Yourself (1996)
219/483-2100
3320 N. Clinton
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Sexuality and fertility are two of the hottest topics related to SCI. Unfortunately, they are two
issues that are often not discussed at length in the rehabilitation setting, especially in recent
years, given the decreasing lengths of stay. Some health care professionals are not comfortable
discussing sex, and often the individual with SCI is focused on becoming as independent as possible in other aspects of daily living while in rehab. In this chapter, we have compiled some
excellent resources on sexuality - some that are specific to individuals with SCI, and others that
focus on various disabilities.
In recent years, more attention has been focused on fertility issues faced by individuals with
spinal cord injuries. Over the past decade, speciality clinics have been opened that deal specifically with the fertility issues faced by men with SCI. In addition to listing those clinics in
California, we have also included some other valuable resources and places to go for more information on fertility. To better address the needs of women with SCI, women’s clinics have also
become popular (See Ch. 20).
SEXUALITY AND FERTILITY ORGANIZATIONS
The American Association of Sex Educators, Counselors, and Therapists (AASECT)
312/644-0828
435 N. Michigan Ave., Suite 1717
Chicago, IL 60611
American Society for Reproductive Medicine (ASRM)
205/978-5000
FAX: 205/978-5005
1209 Montgomery Highway
Website: <www.asrm.org>
• Provides a listing of books related to fertility and maintains patient information
resources on their website
California North Bay Fertility Association
707/575-5831
1111 Sonoma Ave., Suite 214
Date-Able (Dating Service)
301/657-DATE
35 Washington Circle, Suite 205
Chevy Chase, MD 20815
• Emphasis on mixing disabled and non-disabled singles
• Activities, newsletter
23-1
23. Sexuality & Fertility Resources
FertiCare Personal High Amplitude Vibrator
Available from:
Integrated Leadership Technology Service, Inc. (ILTS)
706/855-6351
FAX: 706/855-6391
P.O. Box 1813
Evans, GA 30809
• Vibrator manufactured specifically for ejaculation in men with SCI
• Requires a doctor’s prescription
• May be purchased from the above distributor
The InterNational Council on Infertility Information Dissemination, Inc.
703/379-9178
FAX: 703/379-1593
Website: <www.inciid.org>
• Provides infertility information
The Miami Project Male Fertility Program
University of Miami School of Medicine
305/243-7108
FAX: 305/243-6017
E-mail: [email protected]/mfrp
Website: <www.scifertility.com>
• One of the leading Male Fertility programs in the US
• Involved in fertility research
• Excellent resource for information on male fertility issues for SCI
RESOLVE - The National Infertility Association
617/623-0744
1310 Broadway
Somerville, MA 02144
Website: <www.resolve.org>
• This organization is a national infertility support group that provides resource information
related to infertility
The Sex Information and Education Council of the US (SIECUS)
212/819-9770
130 W. 42nd Street, Suite 2500
New York, NY 10036
23-2
CALIFORNIA CLINICS OFFERING ASSISTED REPRODUCTIVE SERVICES
FOR MEN WITH SCI:
Center for Assisted Reproductive Medicine
UCLA Medical Center - Santa Monica
310/319-4462
FAX: 310/319-4123
1250 16th Street
Santa Monica, CA 90404
Center for Male Reproductive Medicine
310/277-2873
FAX: 310/286-2139
2080 Century Park, East, Suite 907
Website: <www.MaleReproduction.com>
UCLA School of Medicine
310/206-8164
FAX: 310/206-5343
66-131 CHS
Northern California Fertility Medical Center
916/773-2229
FAX: 773-8391
406 Sunrise Ave., Suite 310
Roseville, CA 95661
Website: <www.ncfmc.com>
Reproductive Science Center of the San Francisco Bay Area
925/867-1800
3160 Crow Canyon Rd, Suite 150
San Ramon, CA 94583
23-3
Stanford University Medical Center
650/723-6024
650/725-5546
FAX: 650/723-0765
Dept. of Urology, S-287
300 Pasteur Drive
Stanford, CA 94305-5118
Contact: Stewart W. McCollum, M.D.
VA Healthcare Systems, San Diego
619/543-2628
FAX: 619/543-6573
3350 La Jolla Village Drive, #112F
San Diego, CA 92161
UCSF Mount Zion Urology Faculty Practice
Male Fertility Clinic
415/353-7344
FAX: 415/353-7252
2330 Post Street, 6th Floor
Urological Physicians of San Diego
Sharp Rehabilitation Center
619/299-0670
619/223-4462
4033 Third Ave., #400
San Diego, CA 92103
Website: <www.urologyrx.com>
23-4
BOOKS
A Guide and Resource Directory to Male Fertility Following Spinal Cord Injury/Dysfunction (2000)
Maria J. Amador, BSN, CRRN, Charles M. Lynne, MD, Nancy L. Brackett, PhD, HCLD
305/243-7108
FAX: 305/243-6017
P.O. Box 016960, Mail Locator R-48
Miami, FL 33101
Website: <www.scifertility.com>
• An excellent comprehensive resource guide to current and reliable information on male fertility following SCI
• Information presented summarizes the Miami Project’s research and the excellent work of
many others who have studied and treated infertility in men with SCI
• Available free of charge at the above phone number or website
• Will also be available in Spanish via the website
Finding Love and Intimacy (1994)
Robert Mauro
Accent Special Publications
800/787-8444
FAX: 309/378-4420
P.O. Box 700
In Sickness and Health: Sex, Love and Chronic Illness (1996)
Lucille Carlton
Bantam-Doubleday-Dell
800/323-9872
FAX: 847/768-7095
2487 S. Wolf Rd.
Des Plaines, IL 60018
Website: <www.bdd.com>
Let Me Count the Ways: Discovering Great Sex Without Intercourse (1998)
Marty Klein and Riki Robbins
Penguin Putnam Books
800/526-0275
FAX: 800/227-9604
405 Murray Hill Parkway
East Rutherford, NJ 07073-2136
23-5
Mother-to-Be: A Guide to Pregnancy and Birth for Women with Disabilities (1991)
Judith Rogers and Moleen Matsumura
Demos Medical Publishers
800/532-8663
212/683-0072
FAX: 212/683-0118
386 Park Ave. S.
New York, NY 10016
Website: <www.demospub.com>
Reproductive Issues for Persons with Physical Disabilities (1993)
Florence P. Haseltine, Phd, MD, Sandra S. Cole, PhD and David B. Gray, PhD
800/638-3775
410/337-9580
FAX: 410/337-8539
P.O. Box 10624
Website: <www.brookspublishing.com>
Sexuality After Spinal Cord Injury: Answers to Your Questions (1997)
Stanley H. Ducharme and Kathleen M. Gill
800/638-3775
410/337-9580
FAX: 410/337-8539
P.O. Box 10624
Website: <www.brookspublishing.com>
Sexuality and Disability: A Guide for Everyday Practice (1999)
Elaine Cooper and John Guillebaud
Radcliffe Medical Press
011/44-1235-528-820
FAX: 011/44-1235-528-830
19 Marcham Rd.
Abingdon, Oxon OX14 1AA
United Kingdom
23-6
Sexual Concerns When Illness or Disability Strikes (1989)
Carol L. Sandowski
Charles C. Thomas Publishers
800/258-8980
217/789-8980
FAX: 217/789-9130
2600 S. First St.
Springfield, IL 62704-9265
Website: <www.ccthomas.com>
Sexual Function in People with Disability and Chronic Illness:
A Health Professional’s Guide (1997)
Marca L. Sipski and Craig J. Alexander
800/638-8437
301/417-7500
FAX: 301/417-7650
200 Orchard Ridge Drive, Suite 200
NEWSLETTERS
PeopleNet
516/579-4043
257 Center Lane
Levitown, NY 11756
• Personal ads for individuals with disabilities
23-7
PAMPHLETS
Male Reproductive Function after Spinal Cord Injury (Factsheet #10) (1996)
800/962-9629
301/588-6959
FAX: 301/588-9414
The Zalco Building
Sexuality in Males with Spinal Cord Injury (SCI InfoSheet #3) (1993)
RRTC Training Office
205/934-3283
FAX: 205/975-4691
1717 6th Ave. South
Website: <www.spinalcorduab.edu>
Sexuality After Spinal Cord Injury (Factsheet #3) (1996)
800/962-9629
301/588-6959
FAX: 301/588-9414
The Zalco Building
23-8
VIDEOTAPES
Sexuality Reborn (1993)
800/435-8866
FAX: 973/243-6869
• This videotape was developed for individuals with SCI and their partners
• Features four real couples who share and demonstrate the emotional and physical aspects
of sexuality after SCI
• Contains some very explicit sexual scenes
WEBSITES
Sexual Health Network
<www.sexualhealth.com>
• Provides easy access to sexuality information, education, counseling, therapy,
medical issues, and other sexuality resources for individuals with disabilities,
illness or health related problems
DRM WebWatcher’s Sexuality Page
<www.disabilityresources.org/SEX.html>
• Provides links to other websites related to sexuality and disability
Sexuality and Spinal Cord Injury Bibliography
Medical College of Wisconsin Website
<www.mcw.edu/spinal/bibliography.html>
• Comprehensive bibliography of SCI related articles
23-9
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Support Groups
This chapter lists the current known SCI support groups in the greater Bay Area as of the date of
publication of this SCI-FYI. Because groups are constantly changing and new groups are forming,
a good way to find a new group (after calling the contact number) is to call the resources listed
in Chapter 19.
It has been our experience in referring individuals to these groups that some of them have
somewhat irregular schedules; it is best to call the contact person(s) first to check the schedule,
to determine if this is the best group for yourself/family member/friend/client, and to introduce
yourself or the prospective member to the facilitator so s/he will be expecting you/him/her at
the meeting.
There is an organization that refers individuals to support groups for a wide variety of topics
called the Bay Area Self-Help Network at 800/222-5465 or 415/921-4044. Your local Independent
Living Center will also have some type of support group, though it may not be limited to individuals with SCI. Support groups offered through ILCs are usually open to individuals with various
disabilities.
Please help keep this information up to date. If you find that any information has been changed,
let us know by calling the Rehabilitation Research Center for TBI & SCI at 408/295-9896 x24 or
email us at [email protected]
Barn Builders - Peer Support for Farmers with Disabilities
800/825-4264
317/494-5088
Breaking New Ground Resource Center
Purdue University
1146 Agricultural Engineering Bldg.
West Lafayette, IN 47907-1146
Connections - SCI Support Group
Enloe Rehabilitation Center
Contact: Nancy Jo 530/332-3213
340 W. East Ave.
Chico, CA 95926
• Meets monthly on Wednesdays from 6 - 7pm
Easter Seals-Oakland
SCI Support Group
510/835-2131
2757 Telegraph Ave.
Oakland, CA 94612
24-1
24. Support Groups
Family and Caregiver Support Group
Contact: Dan Mayclin, Ph.D. 408/860-7883 (pager)
• Includes family, caregivers and friends
• Meets every other Thursday at 6:30pm at
Santa Clara Valley Medical Center - Rehabilitation Conference Room
751 S. Bascom Ave.
San Jose, CA 95128
Happy Wheelers
209/823-2087
• Support group for individuals with SCI in Manteca, Stockton, Modesto,
Tracy and outlying areas
• Call for more information
PDQ (Physically Disabled Queers)
408/293-2429
Billy DeFrank Lesbian and Gay Community Center
175 Stockton Ave.
San Jose, CA
• Support group for physically challenged lesbian, gay, bisexual and transgender individuals
805/543-3627
1150 Laurel Lane, Suite 132
Website: <www.slonet.org/~access/
• Meets 3rd Wednesday of the month at The Graduate restaurant in San Luis Obispo
SCI Support Group
209/442-6000 x5783
Fresno Community Hospital and Medical Center
Fresno & R Street
Fresno, CA 93715
• Contact- Alan Roup
• SCI Peer Support group
• Meets 2nd & 4th Wednesdays, 5:00 - 6:30 PM
• Activities, guest speakers
24-2
24. Support Groups
800/962-9629
301/588-6959
FAX: 301/588-9414
The Zalco Building
• In Touch with Kids - Program for children with SCI
• Peer Support through pen pals
• Local chapters
Participants in Progress
916/456-1837
P.O. Box 162426
• Peer support/support group for individuals with disabilities
• Coordinates outings on a monthly basis
Physically Unlimited
408/370-5010
• Peer support/social activity group for individuals with disabilities in the San Jose area
• Meets 3rd Saturday of every month
Santa Clara Valley Medical Center Psychology Department
408/885-4440
751 S. Bascom
San Jose CA 95128
• Peer Support group
• Patient’s Family Group
• Teen group
Spinal Cord Injury Support Group
Contact: Rich Patterson, M.S.
408/295-9896 x12
800/352-1956 x12
• Meets the 3rd Thursday of the month
• Meets at Cypress Senior Center
403 S. Cypress Ave.
San Jose, CA
• 7pm - 8:30pm
24-3
24. Support Groups
Spinal Cord Injury Women’s Group
Contact: Janie Whiteford, M.S.
408/295-9896 x42
800/352-1956 x42
• Meets the 4th Friday of the month at the Rehabilitation Research Center
San Jose, CA 95128
• 12:00am - 2:00pm
• Lunch provided
Trauma/Injury Support Group
San Francisco General Hospital
Contact: Yigal Ben-Haim, PhD 415/206-8000
1001 Portero Ave.
• This support group provides information about care at home after being in a hospital and
provides an opportunity for members to talk with others and gain emotional support. This
is not specifically a SCI group, but pertinent issues are addressed such as emotional issues,
body image and disability issues and adjustment to loss, as well as relationships with family
and friends
Women with Disabilities Support Group
Central Coast Center for Independent Living, Salinas
Contact: Alma Almanza 831/757-2968
• Meets third Thursday of the month, 2 - 4 pm
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Transportation and Travel Resources
Transportation is one of those services that is difficult to access, yet so important for many individuals with spinal cord injury. There has been an increase in paratransit programs in many of
our cities, yet there are still many problems. Some cities don’t have good services for wheelchairs, especially during non-standard (evenings or weekends) hours; others have trip limits
(number of trips/month or destinations); others will only transport to and from medical appointments; others require advance notice.
With all of these restrictions, accessing these transportation resources can be challenging. As
with many of the other resources listed in this guide, it helps to be clear, concise and persistent
when dealing with these organizations.
TRANSPORTATION INFORMATION
Information and Referral Services
408/345-4532
800/255-9333
1275 S. Winchester Blvd., Suite A
San Jose, CA 95128
• County-wide paratransit information
AMBULANCE SERVICE
American Medical Response
650/652-5300
800/847-3148
1616 Rollins Rd.
Burlingame, CA 94010
• Ambulance services for the Greater Bay Area
Bayshore
408/244-3300
370 Hatch Drive
Foster City, CA 94404
• Pick-up from Santa Clara, San Mateo, and San Francisco counties and will transport anywhere in California
BayTrans
408/565-9000
• Transport anywhere 7 days, 24hrs.
• Round-trip $70.00 + $3.00 a mile
• One-way $35.00 + $3.00 a mile
• Visa, Mastercard, MediCal, cash, check
25-1
25. Transportation & Travel Resources
California Medical Transport (CMT)
408/977-0911
• Transport anywhere by guerney
• Round-trip $80.00 + $2.50 mile
• One-way $40.00 + $2.50 mile
• Visa, Mastercard, cash, check, insurance with authorization number
1st Call Plus
408/287-2273
• Local transportation only
• 7 days a week with one day notice
• Round-trip $60.00 + $1.00 mile first 10 miles, $2.00 additional mile
• One-way $40.00 + $1.00 mile first 5 miles, $2.00 additional mile
• Check or cash payment
MV Transportation
408/292-3600
• Service area includes all of California
SPECIALIZED DOOR-TO-DOOR SERVICE (Paratransit)
Community Service Agency of Mountain View/Vantrans Program
650/968-0851
204 Stierlin Rd.
• Provides escorted transportation via staff and volunteers to residents of Los Altos, Los Altos
Hills and Mountain View who qualify for the service. Call the office for enrollment and information. Transports both ambulatory and persons in wheelchairs. Register by phone.
Minimum fee: $6.00 each way.1 - 2 month waiting list
Outreach
408/436-2865
To schedule rides: 408/436-4860
Gilroy Senior Center: 408/683-2688
Milpitas Senior Center: 408/942-2476
97 E. Brokaw Rd., Suite 140
San Jose, CA 95112
• Serves residents of Santa Clara County. Taxi service is available 24 hours/day, 7 days/week.
Van service is available to those who use a wheelchair and are unable to ride in a taxi. Serves
South County residents from 8 am to 5 pm, Monday through Friday. Call the office to enroll.
There may be a waiting list for service. Need to give 1 working day notice prior to scheduled
appointment. Languages spoken are: Tagalog, French, Greek, Italian, Native American
dialects, Spanish and Vietnamese
25-2
Protrans
408/448-7449
2423 Meridian Ave.
San Jose, CA 95124
• Serves Santa Clara County
Santa Clara County Valley Transportation Agency (VTA)
408/321-2300
800/894-9908
3331 North First Street, Bldg. B
San Jose, CA 95134
• Provides information on buses and the Regional Transit Connection Discount Card Program
Mobility Training Program (Bus)
831/423-3868
Santa Cruz Metro Transit District
920 Pacific Ave., Suite 21
Website: <www.scmpd>
• Training in riding the bus system
TRAVEL RESOURCES
Agencies
Accessibility Travel Services
610/873-5759
1042 Hopewell Rd.
Downingtown, PA 19355
Access First Travel
800/557-2047
781/322-1610
239 Commercial Street
Malden, MA 02148
Access Tours
800/929-4811
P.O. Box 499
Victor, ID 80455
25-3
Accessible Adventures
888/880-0222
802/496-2252
P.O. Box 888
Village Square RT 100
Waitsfield, VT 05673
Website: <www.AccessibleAdventures.com>
Accessible Journeys, Inc.
800/846-4537
610/521-0339
FAX: 610/521-6959
35 West Sellers Ave.
Ridley Park, PA 19078
Website: <www.disabilitytravel.com>
ADA Vacations Plus
800/778-7953
651 N. W. 31 Street
Miami, FL 33127
Website: <www.adavacationsplus.com>
Alaska Welcomes You! Inc.
800/349-6301
907/349-6301
P.O. Box 91333
Anchorage, AK 99509
Website: <www.accessiblealaska.com>
Alternative Leisure Company, Inc.
Trips Unlimited
781/275-0023
9 Elmbrook Rd.
Bedford, MA 01730
Website: <www.alctrips.com>
Arizona Raft Adventures
800/786-RAFT
520/526-8200
4050 E. Huntington Dr.
Flagstaff, AZ 86004
Website: <www.azraft.com>
25-4
Breckenridge Outdoor Education Center
970/453-6422
P.O. Box 697
Breckenridge, CO 80424
Website: <www.boec.org>
Challenge Alaska
907/344-7399
907/563-2658
P.O. Box 110065
Anchorage, AK 99511-0065
Cruise Planners
800/801-9002
603/942-5697
70 Garland Rd.
Nottingham, NH 03290
Website: <www.Love2cruise.com>
Discovery Hills Travel
800/750-5975
760/744-6536
886 Overlook Circle
San Marcos, CA 92069
Website: <www.discotravel.com/ruby>
Easy Access Travel
800/920-8989
909/372-9595
5386 Arlington Ave.
Riverside, CA 92504
The Enabled Traveler
916/364-1365
Tuff Tours
P.O. Box 276244
25-5
International Cruise Concepts
800/772-7998
303/797-3404
P.O. Box 163
Littleton, CO 80160
Medically Escorted Cruises and Tours
877/226-3218
954/491-2223
915 East Cypress Creek Rd.
Fort Lauderdale, FL 33334
Website: <www.assistedtravel.com/home.html>
National Ability Center
435/649-3991
P.O. Box 682799
Park City, UT 84068-2799
Website: <www.nationalability.org>
Neverland Adventures
800/717-UCAN
619/696-6068
San Diego, CA 92101
Website: <www.neverland-adventures.com>
Travel Turtle Tours
800/453-9195
203/746-5577
240 Main St.
Danburn, CT 06810
TRIPS Inc.
800/686-1013
541/686-1013
960 East 19th Street
Eugene, OR 97403
Website: <www.tripsinc.com>
25-6
Wilderness Inquiry
800/728-0179
612/379-3858
1313 5th Street SE
P.O. Box 84
Website: <www.wildernessinquiry.org>
Worlds of Travel
770/698-8444
Four Winds Travel and Tour
Co. 9 Dunwoody Park, Suite 11
Decatur, GA 30338
OTHER TRAVEL RESOURCES
Organization for the Promotion of Access and Travel for the Handicapped
813/932-0916
P.O. Box 15777
Tampa, FL 33684
• Organization that promotes accessible travel accommodations for travelers with disabilities
Mobility International USA
541/343-1284
P.O. Box 10767
Eugene, OR 97440
• Non-profit organization dedicated to integrating international exchange programs
for persons with disabilities
• Publish quarterly newsletter
Travel Industry and Disability Exchange (TIDE)
818/343-6339
5435 Donna Ave.
Tarzana, CA 91356
• Non-profit organization dedicated to the development and expansion of travel
by people with disabilities
• Operates Nautilus Tours which specializes in independent travel and tours
for wheelchair travelers
• $15.00 annual membership
• Publish quarterly newsletter - Tide’s In
25-7
BOOKS, NEWSLETTERS AND MAGAZINES
Access America
Northern Cartographic, Inc.
P.O. Box 133
Burlington, VT 05402
• An atlas and guide to the national parks for visitors with disabilities
Access Amtrak: A Guide to Amtrak Services for Travelers with Disabilities (1998)
Office of Amtrak Access
800/USA-RAIL
202/906-2121
FAX: 202/906-2500
2W, 60 Massachusetts Ave. NE
Website: <www.amtrak.com>
• Free guide that provides information about reservations, discounts, ticketing, accessible
coaches, sleeping accommodations, meals, service animals and other concerns of travelers
with disabilities
Access to Travel Magazine
888/439-4146
P.O. Box 43
Delmar, NY 12054
Website: <www.accesstravelmag.com>
Easy Access to National Parks
The Sierra Club Guide for People with Disabilities
Miramar Communications
P.O. Box 8987
Malibu, CA 90265-8987
Emerging Horizons
C & C Creative Concepts
209/599-9409
P.O. Box 278
Ripon, CA 95366
25-8
Fodor’s Great American Vacations for People with Disabilities (1996)
Anto Howard and Donna Comacchio
Fodor Travel Publications
800/733-3000
Random House Order Department
400 Hahn Rd.
Westminster, MD 21157
Website: <www.randomhouse.com>
The Handicapped Travel Newsletter
P.O. Box 269
Athens, TX 75751
• $10.00 per year
The Itinerary
Subscription Dept.
P.O. Box 1084
Bayonne, NJ 07002-1084
Open World
Society for the Advancement of Travelers with Handicaps
212/447-1928
347 Fifth Ave., Suite 610
New York, NY 10016-5010
Website: <www.sath.org>
• Quarterly publication
Over the Rainbow
541/343-1284
P.O. Box 10767
Eugene, OR 97440
25-9
Travel After Spinal Cord Injury
National Spinal Cord Injury Association Fact Sheet #15
800/962-9629
301/588-6959
FAX: 301/588-9414
The Zalco Building
Travel Notes
Accessible Journeys, Inc.
800/846-4537
610/521-0339
FAX: 610/521-6959
35 West Sellers Ave.
Ridley Park, PA 19078
Website: <www.disabilitytravel.com>
The Very Special Traveler
TVST P.O. Box 756
New Windsor, MD 21776
A World of Options: A Guide to International Exchange Community Service and
Travel for Persons with Disabilities (1997)
Christa Bucks
541/343-1284
P.O. Box 10767
Eugene, OR 97440
• Ideas and resources to promote the involvement of people with disabilities
in international exchange programs
25-10
ON-LINE RESOURCES
Accessible Traveler’s Database
Project Action
800/659-6428
202/347-3066
Website: <www.projectaction.org>
• Lists accessible van rental companies, private bus tour companies with accessible vehicles,
accessible taxis, and information on airport transfers, hotel shuttles and travel agencies in
areas throughout the US
AccessAble Travel Source
Website: <www.dbserver.accessable.com/accessable/agents.cfm>
• Database of travel agents around the world
Accessible Travel Section
Moss Rehab ResourceNet
Website: <www.mossresourcenet.org/agencies.htm>
• Maintains a list of specialized travel agencies
Everybody’s Airline Directory Website
Website: <www.everybody.co.uk>
• Lists the world’s major airlines and information on their arrangements for
passengers with disabilities
Global Access Travel
Website: <www.globalaccess.com.au>
• On-line information service for people with disabilities looking to travel to Australia
ACCESSIBLE VAN RENTALS
Priceless Rent-A-Car
Accessible Transportation Department
800/662-8322 x403
Website: <www.pricelesscar.com>
Rainbow Wheels
800/910-VANS
Website: <www.rainbowwheels.com>
• Nation-wide rentals
• Short or long term
25-11
Wheelers East, Inc.
800/862-7475
215/647-4090
FAX: 215/296-7203
• Van rentals in Pennsylvania, Washington, DC, Delaware, New Jersey, Maryland,
Connecticut, New York and Virginia
Wheelchair Getaways
800/642-2042
Website: <www.wheelchair-getaways.com>
• Nationwide rentals
• Short and long term rentals
AIR TRAVEL
All airlines are mandated by law to be wheelchair accessible. Wheelchair travelers are entitled to
all the comforts and accommodations of non-wheelchair travelers. Assistance boarding and
deboarding the plane as well as proper storage of your wheelchair should be arranged prior to
departure date. Each airline may have slightly different reservation procedures, so a list of the
major airlines with reservation numbers is included below. If you are traveling with an attendant
or using a ventilator, make sure the airline is clear about all your needs.
•
•
•
•
•
•
•
•
•
Alaska
American
Continental
Delta
Northwest
Southwest
TWA
United
USAir
25-12
800/426-0333
800/433-7300
408/280-5353
800/221-1212
800/225-2525
800/435-9792
800/221-2000
800/241-6522
800/428-4322
BUS
Greyhound bus line is accessible to wheelchair travelers. Reservations need to be made 48hrs. in
advance but four to seven days is preferred. Once reservations are made, the disabled services
department needs to be informed of your travel dates, times and special needs. Companions or
attendants travel free.
• Greyhound Bus lines
800/231-2222 (English)
800/531-5332 (Spanish)
Reservations: 800/231-2222
Disabled services: 800/752-4841
TRAIN
Each train is mandated to have at least four available accessible compartments. The rooms are
bigger and have larger bathrooms. Accessible compartments sleep two. If the dining car is on
the second deck, you will need to “order in.”
• Amtrak
800/872-7245
CRUISE
Cruise ships are also a viable mode of transportation. The cabins are larger and all the decks are
wheelchair friendly. See travel agencies for more information on reservations and cruise destinations.
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Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
Vocational & Prevocational Services
The services listed in this chapter can assist the individual with SCI in learning skills for a career,
provide assistance with the job seeking process, and/or obtain job placement (vocational).
Additional services that the following organizations may be able to provide include assisting the
individual with SCI with learning about work attitudes, habits, and the social skills necessary for
work success (prevocational).
Since most persons with SCI are injured at a young age before they have a career path established, there is bound to be some uncertainty as to vocational direction. The injury can complicate the situation, as most are young and exploring new options;‘having the rug pulled out’
from under you with a SCI and then being pulled backwards into a ‘prevocational’ activity naturally has repercussions and some counseling may be in order.
For those people who are not yet ready for paid work, volunteer work is an excellent avenue to
explore. The Volunteer Exchange can match the volunteer’s needs (type of work, location, hours)
with their database and locate organizations who are seeking volunteers.
A major resource for those with SCI is the Department of Rehabilitation (DR). They supply diagnostic evaluations, counseling and case management, and they will fund those services deemed
reasonable for return to work, including training, testing, job referrals, and job coaching. The
Department of Rehabilitation also pays for supplies, transportation to training, tools needed for
the job, and license or union fees. To be eligible for DR services, one must have a vocational
objective, a medically diagnosed disability which prevents entering or return to employment,
and a reasonable expectation that the services DR provides will enable the person to go to work.
The list below includes our local programs that provide vocational/prevocational services, as well
as several national resources for vocational information.
408/975-2730
San Jose, CA 95128
• English as a second language classes
Bay Area Coalition for the Employment of Persons with Disabilities (BACED)
650/617-8340
P.O. Box 8007
San Jose, CA 95155-8007
Website: <www.deanza.fhda.edu/programs/cdep/scccedbaced.html>
• A network of local non-profit agencies, public agencies and educational institutions
dedicated to increasing competitive employment of individuals with disabilities
• This is achieved through professional development, employer/consumer training
and networking of BACED member agencies
26-1
26. Vocational & Prevocational Services
Career Action Center
408/253-1385
10420 Bubb Rd., Suite 100
Cupertino, CA 95014
Website: <www.careeraction.org>
Career Development and Employment Program
408/864-8923
De Anza College High Tech Training Center Program
21050 McClellan Rd.
Cupertino, CA 95014
Website:<www.deanza,fhda.edu/Programs/Special/cdep%20homepage/cdep.html>
• Offer vocational/functional evaluation, career exploration, job placement assistance,
ADA/legislation training, and additional resources and referrals to the community. They also
post employer job listings at no cost to the employer
Crossroads Employment Services
916/457-1900
3823 “V” Street, Suite 1
Website: <www.osb.net/crossroads>
• Must have a case open with the State Department of Rehabilitation
• Job skills, placement, and training
408/971-0888
FAX: 408/971-2893
P.O. Box 610968
San Jose, CA 95161
• Two vocational training programs
• English as a Second Language (ESL) classes
• Job placement program for refugees
• General Equivalency Diploma (GED) program for those on Aid for Families with Dependent
Children (AFDC)
916/653-0707
722 Capitol Mall
• Labor exchange service
• Job placement
26-2
Governor’s Committee for Employment of Disabled Persons
916/654-8055
FAX: 916/654-9821
800 Capitol Mall-MIC41
Website: <www.gcedp.org>
The Graham Consulting Group
Southern California:
831/685-1673
FAX: 831/685-1675
33 Morehouse Drive
La Selva Beach, CA 95076
Northern California:
1901 So. Bascom, Suite 250
San Jose, CA 95010
• Vocational evaluation
Institute of Career Development (Division of Goodwill)
408/998-5787
FAX: 408/283-9093
1080 North Seventh St.
San Jose, CA 95112
Website: <www.goodwillsanjose.com>
• Work adjustment, evaluation, training and placement
ILR Program on Employment and Disability
Cornell University
607/255-2906
FAX: 607/255-2763
102 ILR Extension
Ithaca, NY 14853-3901
Website: <www.ilr.cornell.edu/PED/ADA/>
• Offers a selection of brochures about employment issues relating to the Americans with
Disabilities Act. Topics range from pre-employment testing and screening to working effectively with individuals with disabilities
26-3
800/ADA-WORK
800/232-9675
918 Chestnut Ridge Rd., Suite 1
P.O. Box 6080
Morgantown, WV 26506-6080
Website: <http://Janweb.icdi.wvu.edu/english/whatis.htm>
• This is an international toll-free consulting service that provides information about job
accommodations/modifications and the employability of people with functional limitations.
Calls are answered by consultants who understand the functional limitations associated
with disabilities. They can offer the caller comprehensive and up-to-date information about
accommodations and strategies
Limited Examination and Application Program (LEAP)
916/445-0538 x300
801 Capitol Mall
• The State Personnel Board’s LEAP Program helps persons with disabilities secure State Jobs.
Your Department of Rehabilitation counselor can help you with the application, examination
and hiring process
Mexican American Community Services Agency (MACSA)
408/928-1122
FAX: 408/928-1169
130 N. Jackson Ave.
San Jose, CA 95116
• Job training/assistance program
JWT Specialized Communications
800/676-7080 x300
6500 Wilshire Blvd., 21st Floor
Website: <www.jwtworks.com>
• Listing of professional job openings for over a dozen major national corporations.
Job seekers with disabilities can obtain a free copy
26-4
Nova Bridge Program
408/730-7775
FAX: 408/732-8526
6505 West Olive Ave., Suite 550
Sunnyvale, CA 95086
• Job placement - Santa Clara and San Mateo counties
Occupational Solutions
408/448-4098
FAX: 408/448-4099
1723 E. Hamilton Ave., Suite M
San Jose, CA 95125
• Vocational testing and evaluation, work tryouts, ergonomic and work station assessments,
adaptive device assessment and training, functional capacity assessments, reconditioning
and work hardening, job analysis, and reasonable accommodation assistance
Palo Alto Health Care System (Veterans)
650/493-5000 x2396
3801 Miranda Ave.
Palo Alto, CA 94304
• Counseling and job placement assistance for veterans
Peninsula ReCare
650/697-8924
FAX: 650/697-5010
1764 Marco Polo Way
Burlingame, CA 94010
• Vocational rehabilitation services
• Department of Rehab and Regional Center Programs
President’s Committee on Employment of People with Disabilities
202/376-6200
FAX: 202/376-6205
1331 “F” Street, NW, Suite300
Website: <www.pcepd.gov>
• Offers a wealth of free publications related to employment for individuals with disabilities
26-5
Project Hired
408/557-0880
FAX: 408/557-0710
270 Franklin Mall
Website: <www.impactonline.org/prohired>
• Project Hired (Helping Industry Recruit Employees With Disabilities) assists individuals with
disabilities to secure jobs appropriate to their qualifications and career goals. They also
maintain a range of services for job placement and career development
831/753-4268
FAX: 831/753-4276
20 Sherwood Place
Salinas, CA 93906
• Independent living skills classes
Santa Clara County Committee For Employment of the Disabled
P.O. Box 8007
San Jose, CA 95155-8007
Website: <www.deanza.fhda.edu/programs/cdep/scccedbaced.html>
• Local chapter of the California Governor’s Committee for Employment of People with
Disabilities
408/894-9041
FAX: 408/894-9050
2306 Zanker Rd.
San Jose, CA 95131
Gilroy office:
408/847-1805
Gilroy, CA 95020
• Vocational preparation and placement assistance
26-6
Vet Center
408/993-0729
278 N. Second St.
San Jose, CA 95112
• This is an outpatient clinic for veterans, with an emphasis on Vietnam Veterans. Offers counseling and deals with issues around marriage and family stress, depression, and also has an
Employment Development Department Employment Specialist available four days per week
Vocational Program - Goodwill Industries of Sacramento
916/395-9000
6648 Franklin Bl.
• Need to be referred to program by private counselor or DR
Volunteer Center Alameda County/Tri-Valley
510/419-3970
FAX: 510/419-3975
Oakland, CA 94612
Hayward Office
510/538-0554
FAX: 510/538-9317
21455 Birch Street
Hayward, CA 94541
Pleasanton Office
925/462-3570
333 Division Street
Pleasanton, CA 94566
• Match volunteers with volunteer opportunities
Volunteer Center of Contra Costa County
925/472-5760
FAX: 925/472-5780
1820 Bonanza, #100
26-7
Volunteer Center of Marin County
415/479-5660
FAX: 415/479-9722
650 Los Gallinas
Volunteer Center of Napa County
707/252-6222
FAX: 707/226-5179
1820 Jefferson Street
Napa, CA 94559
Volunteer Center of Sacramento and Yolo Counties
916/567-3100
1783 Tribute Rd., Suite D
Volunteer Center of San Mateo County
650/342-8001
FAX: 650/342-1399
800 S. Claremont, #108
San Mateo, CA 94402
Volunteer Center of San Francisco
415/982-8999
FAX: 415/982-0890
425 Jackson Street
Volunteer Center of Sonoma County
707/573-3399
FAX: 707/573-3380
153 Stoney Circle, Suite 100
Petaluma Branch: 707/762-0111
Sonoma Branch: 707/996-4644
Volunteer Exchange
408/247-1126
FAX: 408/247-5805
1922 The Alameda, #211
San Jose, CA 95126
• Links community members to volunteer opportunities in Santa Clara County
26-8
Volunteerism Project
415/772-7393
Volunteer Hotline: 800/CARE-123
FAX: 415/391-8302
50 California, Suite 200
ON-LINE RESOURCES
The following websites contain resume posting services or job banks for individuals with
disabilities.
Challenge 2000
<www2.interaccess.com/netown>
<www.diversitydirect.com>
Independence Bank
<www.ind-bank.org>
<www.business-disability.com/home.asp>
New Mobility’s Jobline
<www.newmobility.com/jobline>
University of Minnesota Disability Service Careers Online
<disserv3.stu.umn.edu/COL>
26-9
BOOKS
How to Kick Ass and Win: A Consumer’s Guide to Getting Services and Equipment from the State
Vocational Rehabilitation Agency by Using the Appeals Process (1991)
Barbara Bradford Knowlen
Barrier Breakers
612/521-5317
4239 Camp Rd.
Oriskany Falls, NY 13425
Off to Work Curriculum
HDI Publishers
713/682-8700
FAX: 713/956-2288
P.O. Box 131401
Houston, TX 77219
VIDEOTAPES
Disclosing Abilities (1995)
Instructional Materials Laboratory, University of Missouri
800/669-2465
314/882-2883
FAX: 573/882-1992
2316 Industrial Drive
Columbia, MO 65202
• Designed to help individuals with disabilities have successful job interviews
Enable - People with Disabilities and Computers
Website: <www.microsoft.com/enable/productions>
Everyone Can Work Video
HDI Publishers
713/682-8700
FAX: 713/956-2288
P.O. Box 131401
Houston, TX 77219
26-10
DEPARTMENT OF REHABILITATION LOCATIONS
IN NORTHERN CALIFORNIA
The mission of the Department of Rehabilitation is to assist people with disabilities in obtaining
and retaining meaningful employment and living independently in their communities. The
Department of Rehabilitation develops, purchases, provides and advocates for programs and
services in vocational rehabilitation, habitation, and independent living with a priority on serving
persons with all disabilities, especially those with the most severe disabilities, including SCI.
District Office
408/277-1355
FAX: 408/277-1402
FAX: 408/277-1270
100 Paseo de San Antonio, Rm. 324
San Jose, CA 95113-1479
Chris Longoria
Santa Clara Valley Medical Center Representative
408/725-2914
Senior Rehabilitation Counselor
West San Jose Branch
1471 Saratoga Ave., Suite 100
San Jose, CA 95129
Antioch
925/754-7700
3656 Delta Faire Blvd.
Antioch, CA 94509
Crescent City
707/464-6129
950 Front Street
Crescent City, CA 95531
Auburn
530/823-4040
610 Auburn Ravine Rd., Suite G
Auburn, CA 95603
Elk Grove
916/686-8420
8920 Emerald Park Dr., Suite D
Elk Grove, CA 95624
Berkeley
510/883-6000
1936 University Ave., Suite 150
Berkeley, CA 94704
Eureka
707/445-6300
310 Third Street
Eureka, CA 95501
Chico
530/895-5507
470 Rio Linda Ave., Suite 4
Chico, CA 95926
Fremont
510/794-2458
39155 Liberty St., Suite F-630
Fremont, CA 94538
26-11
Fresno
209/445-6011
2550 Mariposa Mall, Suite 2000
P.O. Box 24001
Fresno, CA 93779-4001
Fairfield
707/428-2080
2750 North Texas, Suite 210
Fairfield, CA 94533
Grass Valley
530/273-9529
970 E. Main St., Suite100
Grass Valley, CA 95945-5845
Hayward
510/782-8105
1316 West Winton Ave.
Hayward, CA 94545-1408
Menlo Park
650/688-6380
800 Menlo Ave., #122
Menlo Park, CA 94025-4784
Modesto
209/576-6220
1317 Oakdale Rd., Suite 520
Modesto, CA 95355-3364
Napa
707/253-4924
1001 2nd Street, #245
Napa, CA 94559
Oakland
510/622-2764
1515 Clay St., Suite 119
Oakland, CA 94612
26-12
East Oakland
510/577-6829
7700 Edgewater Drive, Suite 120
Oakland, CA 94621
Placerville
530/626-0900
344 Placerville Dr., #11
Placerville, CA 95667-3920
Pleasant Hill
925/602-3953
2285 Morello Ave.
Pleasant Hill, CA 94523-1896
Redding
530/224-4708
1900 Churn Creek Rd., Suite 100
Redding, CA 96002-0292
Redbluff
530/529-4270
705 Pine Street
Redbluff, CA 96080-3743
Richmond
510/232-7062
12810 San Pablo Ave
Richmond, CA 94805-1356
Roseville
916/774-4400
151 North Sunrise Ave., Suite 601
Roseville, CA 95661
Sacramento
916/322-8500
2225 19th Street
Northeast Sacramento
916/263-6600
5777 Madison Ave., #1050
Stockton
209/948-7700
4555 Precissi Lane, Suite 1
Stockton, CA 95207-6273
South Sacramento
916/262-1575
700 Franklin Blvd., #625
Susanville
530/257-6073
170 B Russell Ave.
Susanville, CA 96130-4299
San Bruno
650/737-2606
801 Traeger Ave., Suite 120
San Bruno, CA 94066-3045
Ukiah
707/463-4791
625 Kings Court, Suite A
Ukiah, CA 95482
San Francisco
415/904-7100
185 Berry St. , Lobby 7, Suite 180
Vallejo
707/648-4010
480 Redwood Street, Suite 40
Vallejo, CA 94590
San Mateo
415/358-4161
1500 Fashion Island Blvd., #104
San Mateo, CA 94404-1576
Woodland
530/668-6824
115 Main Street
Woodland, CA 95695-3097
San Rafael
415/454-7960
3010 Kerner Blvd.
Yreka
530/842-1662
1288 S. Main St.
Yreka, CA 96097-3439
Santa Rosa
707/576-2233
50 “D” Street, #425
Yuba City
530/741-4591
1237-B Live Oak Blvd.
Yuba City, CA 95991-2998
South Lake Tahoe
530/541-3226
2489 Lake Tahoe Blvd., #4
South Lake Tahoe, CA 96150-7732
26-13
A
1.
2.
3.
4.
5.
6.
7.
8.
9.
10.
11.
12.
13.
14.
15.
16.
17.
18.
19.
20.
21.
22.
23.
24.
25.
26.
A.
Consumer Resources
Education Resources
Independent Living
SCI Publications
Support Groups
Index
A. Index
A
A. J. Pappanikou Center 3-3
The Sex Information and Education Council of the US
(SIECUS) 23-2
AAA Traffic Safety and Engineering 7-7
Abba Medical Services, Inc. 8-1
Abingdon, OX, UK
Radcliffe Medical Press 23-6
Abledata 2-1, 2-9, 2-10, 12-6, 21-2
Ablenet 2-1
Accent on Info 2-1
Accent Special Publications 23-5
Access Development Co. 7-3
Access First Travel 25-3
Access Options, Inc. 7-3
Access Program (Acute Crisis Care & Entry Into
System Services) 5-2, 5-8
Access Tours 25-3
Access Tours, Inc. 21-6
AccessAble Travel Source 21-7, 25-11
Accessibility Travel Services 25-3
Accessible Adventures 25-4
Accessible Journeys, Inc. 25-4, 25-10
Accessible Space, Inc. (ASI) 12-1
Accessible Travel 21-6
Accessible Travel Section 25-11
Accessible Traveler’s Database 25-11
ADA Vacations Plus 25-4
Adaptive Device Locator System Academic Software,
Inc. 2-2
Adaptive Driving Aid 7-1, 7-3
Adaptive Driving Systems 7-4
Addison, TX
Kent Waldrep National Paralysis Foundation 6-3,
17-2
Addison-Wesley-Longman Publishing Company 2-9
Administrators in Medicine (AIM) DocFinder 11-8
1-1, 5-2, 20-6, 20-7
Adult Protective Services 14-1
Al-Anon 1-2
Alameda, CA
College of Alameda 9-4
Hunter House Publishers, Inc. 2-9
Alan Hancock 9-4
Alaska Welcomes You! Inc. 25-4
Alaskan Airlines 25-12
Alcoholics Anonymous (AA) 1-1, 5-1
Alexandria, VA
National Accessible Apartment Clearinghouse
12-3
National Rehabilitation Association 6-5
Paralysis Society of America 6-6
Alexian Home Care 11-6
Alliance for Community Care 5-8
Alta Bates Rehabilitation Center 11-1
Alta Bates Summit Medical Center 20-8
Alternative Leisure Company, Inc. 25-4
Alviso, CA
Family Health Foundation of Alviso 1-4
American Airlines 25-12
American Association of Physical Medicine and
Rehabilitation (AAPM&R) 11-8
The American Association of Sex Educators,
Counselors, and Therapists (AASECT) 23-1
American Association of Spinal Cord Injury Nurses 6-1
American Association of Spinal Cord Injury
Psychologists and Social Workers 6-1
American Board of Medical Specialties (ABMS)
Certified Doctor Verification Service 11-8
American Canoe Association 16-12
American Chronic Pain Association 6-1
American Civil Liberties Union 14-1
American Conservatory Theatre (ACT) 16-15
American Driver and Traffic Safety Education
Association (ADTSEA) 7-5
American Handcycle Association 16-10
American Indian Education Center 20-4
American Indian Rehabilitation Research and Training
Center 18-1
American Medical and Equipment Supply, Inc. 8-2
American Medical Association (AMA) Physician Select
On-Line Doctor Finder 11-8
American Medical Response 25-1
American Occupational Therapy Association (AOTA)
7-5
American Paraplegia Society 6-1, 17-1
American River College 9-4
American Society for Reproductive Medicine (ASRM)
23-1
American Spinal Injury Association (ASIA) 6-2, 18-1
American Syringomyelia Alliance Project (ASAP) 6-2
American Wheelchair Bowling Association 16-9
Amtrak 25-13
Anchorage, AK
Alaska Welcomes You! Inc. 25-4
Challenge Alaska 25-5
Ann Arbor, MI
University of Michigan 18-6
Antioch, CA
Department of Rehabilitation 26-11
Apex Driving School 7-1
Apria Healthcare, Inc. 8-2
Aptos, CA
Cabrillo College 9-4, 16-1
Aqua Sports Association for the Physically Challenged
16-12
A-1
A. Index
Arcata, CA
CSU Humboldt 9-8
Aris 5-5, 12-1
Arizona Raft Adventures 25-4
Arkansas Spinal Cord Commission 3-2, 22-7
Arlington, VA
National Council on Independent Living (NCIL)
13-4
RESNA 2-7
ArtDis - Art and Disabilities Home Page 21-6
Asian Law Alliance 14-1
Asian-Americans For Community Involvement (AACI)
1-2, 5-1, 5-6, 9-2, 11-1, 12-1, 20-1, 26-1
Aspen Publishers, Inc. 2-9, 3-7, 9-10, 22-5, 23-7
Assistance Dog Institute 13-6
Assistive Device Assessment Program (ADAP) 2-2
The Assistive Technology Center 7-7
Assistive Technology (AT) Network 2-2
7-2, 7-6
The Assistive Technology Center 7-7
Association of Disabled American Golfers 16-9
Athens, TX
The Handicapped Travel Newsletter 25-9
Atlanta, GA
6-2, 18-1
Shepherd Center 3-4, 3-6, 18-6
Auburn Hills, MI
Volkswagon Mobility Access Program 7-6
Auburn, CA
Placer Independent Resource Services 13-3
Augmentative Communication News 2-2
B
Bakersfield, CA
CSU Bakersfield 9-8
Independent Living Center of Kern County 13-2
Baltimore, MD
National SCI Hotline 6-6
Paul H. Brookes Publishing Co. 20-10, 23-6
Bantam-Doubleday-Dell 23-5
Barn Builders - Peer Support for Farmers with
Disabilities 24-1
Barrier Breakers 26-10
Battered Women’s Hotline for Lesbians, Bisexuals and
Straight Women 5-6
Bay Area and Western Paralyzed Veterans of America
20-10
Bay Area Association of Disabled Sailors 16-5
Bay Area Coalition for the Employment of Persons
with Disabilities (BACED) 26-1
A-2
Bay Area Outreach and Recreation Program (BORP)
16-5
Bayonne, NJ
The Itinerary 25-9
Bayshore 25-1
BayTrans 25-1
Beach Center on Families and Disabilities 15-1, 20-4
Bedford, MA
Alternative Leisure Company, Inc. 25-4
Behring Auto Museum 16-13
Belmont, CA
Center for Independence of the Disabled, Inc.
13-1
Daytop Village 20-2
Berkeley Greek Theatre 16-16
Berkeley, CA
Alta Bates Rehabilitation Center 11-1
Alta Bates Summit Medical Center 20-8
Bay Area Outreach and Recreation Program
(BORP) 16-5
Berkeley Greek Theatre 16-16
Breast Health Access for Women with Disabilities
(BHAWD) 20-8
Center for Accessible Technology 2-3
Center for Independent Living 13-1
Disability Rights Education of Defense Fund
(DREDF) 14-4
Pacific Disability and Business Technical
Assistance Center 14-6
Power Soccer 16-10
Through the Looking Glass 15-3
University of California, Berkeley 9-9
Vista College 9-8
Wheelchairs of Berkeley 8-4
Bethesda, MD
American Occupational Therapy Association
(AOTA) 7-5
Betty Wright Swim Center 16-2
4-1, 20-3, 24-2
Birmingham, AL
American Society for Reproductive Medicine
(ASRM) 23-1
National Spinal Cord Injury Statistical Center 6-6
RRTC on Secondary Conditions of Spinal Cord
Injury 17-5
RRTC Training Office 23-8
Spain Rehabilitation Center 3-4, 3-5, 18-5
University of Alabama at Birmingham 6-6
Bloomfield Hills, MI
Chrysler Automobility Program 7-2, 7-6
Ford Motor Corporation Mobility Motoring
Program 7-6
A. Index
Bloomington, IL
Accent on Info 2-1
Accent on Living 22-1
Accent Special Publications 23-5
Blossoms Prenatal Substance Abuse Program 1-2
Books
The Accessible Housing Design File 12-5
Access America 25-8
Access Amtrak: A Guide to Amtrak Services for
Travelers with Disabilities 25-8
Adapting PC’s for Disabilities 2-9
Adaptive Baby Care Equipment: Guidelines,
Prototypes, and Resources 15-4
Adaptive Parenting Idea Book 15-4
Addressing Discrimination Against Persons With
Disabilities: Self-Help and the Civil Rights
Lawyer 14-8
Alcohol and Other Drug Abuse Prevention for
People with TBI and SCI 1-7
Alcohol, Tobacco and Other Drug Prevention
Activities for Youth and Adults with
Disabilities: Substance Abuse Resources and
Disability Issues (SARDI) 1-7
Avoiding Attendants from Hell: A Practical
Guide to Finding, Hiring and Keeping
Personal Care Attendants 3-3
Building For A Lifetime: The Design and
Construction of Fully Accessible Homes 12-5
Computer Resources for People with Disabilities:
A Guide to Exploring Today’s Assistive
Technology 2-9
Directory of California Respite Resources 19-1
Directory of California Support Groups 19-2
Directory of Human Services for Santa Clara
County 19-1
Disability, Pregnancy and Parenthood
International 15-4
The Disabled Drivers Mobility Guide 7-7
Dollars for College: The Quick Guide to Financial
Aid for Students with Disabilities 10-7
Easy Access to National Parks 25-8
Enhancing Independence: A Personal Care
Attendant Training Manual 3-3
Evaluating Selecting and Using Appropriate
Assistive Technology 2-9
Families Are Important: An Early Childhood
Guidebook for Families of Young Children
with Disabilities 15-5
Financial Aid for the Disabled and Their Families
10-6
Finding Love and Intimacy 23-5
Fodor’s Great American Vacations for People with
Disabilities 25-9
Getting from Here to There - A Manual on
Personal Assistance (1996) 3-3
A Guide and Resource Directory to Male Fertility
Following Spinal Cord Injury/Dysfunction
23-5
Hiring Home Health Caregivers 3-4
How to Kick Ass and Win: A Consumer’s Guide to
Getting Services and Equipment from the
State Vocational Rehabilitation Agency by
Using the Appeals Process 26-10
In Sickness and Health: Sex, Love and Chronic
Illness 23-5
Inclusion and Parent Advocacy: A Resource Guide
15-5
Inform Yourself- Alcohol, Drugs and Spinal Cord
Injury: A Resource Guide for Persons with
Spinal Cord Injury and Their Families 1-8
Legal Rights for the Catastrophically Ill and
Injured 14-8
Let Me Count the Ways: Discovering Great Sex
Without Intercourse 23-5
Mother to Be: A Guide to Pregnancy and Birth
for Women with Disabilities 15-5, 23-6
National Database of Educational Resources for
SCI 9-11
National Resource Directory 22-4
Off to Work Curriculum 26-10
Ordinary Families, Special Children: A Systems
Approach to Childhood Disability 15-5
Pathways to Health: You Do Have A Choice
3-7, 9-9, 22-5
Personal Assistance Service Guide 3-4
Personal Assistance Training Manual 3-4
Planning for Access: A Guide to Planning and
Modifying Your Home 12-6
Pregnancy and Women with Spinal Cord Injury
15-6
Ramps and Accessible Thresholds 12-6
Reflections from a Mud Puddle: Helping Children
Cope and Grow 15-6
Reproductive Issues for Persons with Physical
Disabilities 23-6
Residential Remodeling and Universal Design:
Making Homes More Comfortable and
Accessible 12-6
Santa Clara County Multicultural Community
Information Directory 19-3
SCI Homecare Manual 9-11, 22-6
Sexual Concerns When Illness or Disability Strikes
23-7
Sexual Function in People with Disability and
Chronic Illness: A Health Professional’s Guide
23-7
Sexuality After Spinal Cord Injury: Answers to
Your Questions 23-6
A-3
A. Index
Sexuality and Disability: A Guide for Everyday
Practice 23-6
The Special- Needs Reading List: An Annotated
Guide to the Best Publications for Parents
and Professionals 15-6
Spinal Cord Injury - For Your Information: A
Guide to Resources for Individuals with
Spinal Cord Injury 22-5
The Spinal Cord Injury Handbook for Patients
and Their Families 3-7, 9-10, 22-5
Spinal Cord Injury Homecare Manual 3-7, 9-10
Spinal Cord Injury Patient Education Manual
3-7, 9-10, 22-5
Spinal Cord Injury: A Manual for Healthy Living
3-7, 9-10, 22-6
Spinal Network: The Total Wheelchair Resource
Book 9-10
Table Manners: A Guide to Pelvic Examination
for Disabled Women and Health Care
Providers 20-10
Taking Care of Yourself While Providing Care 3-5,
22-6
The Trace Resourcebook: Assistive Technology for
Communication, Control and Computer
Access 2-10
Views from Our Shoes: Growing Up with a
Brother or Sister with Special Needs 15-7
Women with Physical Disabilities: Achieving and
Maintaining Health and Well-Being 20-10
A World of Options: A Guide to International
Exchange Community Service and Travel for
Persons with Disabilities 25-10
Yes, You Can!: A Guide to Self-Care for Persons
with Spinal Cord Injury 3-8, 9-10, 22-6
You Can’t Change the Past But You Can Choose a
Future: The Facts About Spinal Cord Injury,
Tobacco, and Other Drugs 1-8
Boston University Medical Center 18-6
Boston, MA
Helping Hands - Monkey Helpers for the
Disabled 13-7
Brannons Medical 8-1
Breast Health Access for Women with Disabilities
(BHAWD) 20-8
Breckenridge Outdoor Education Center 25-5
Breckenridge, CO
Breckenridge Outdoor Education Center 25-5
Buffalo, NY
Project Link: Center for Assistive Technology 2-6
Burbank, CA
Christopher Sampson Foundation 10-1
Burlingame, CA
American Medical Response 25-1
A-4
Peninsula ReCare 26-5
Burlington, VT
Northern Cartographic, Inc. 25-8
Butte College 9-4
Byron Center, MI
PAWS With A Cause 13-6
C
C & C Creative Concepts 25-8
C.A.P.S. 1-2
C.A.T.S. 2-3
Cabrillo College 9-4, 16-1
Cal Poly San Luis Obispo 9-8
California Academy of Sciences 16-13
California Antique Aircraft Museum 16-13
California Children’s Services 4-1, 10-1, 11-1, 20-2
10-1 to 10-2
California Department of Veterans Affairs 20-10
California Fair Employment and Housing Department
12-2
California Foundation for Independent Living Centers
(CFILC) 13-3
California Medical Transport (CMT) 25-2
California North Bay Fertility Association 23-1
California Rehabilitation Association (CRA) 6-2
California Rehabilitation Equipment 8-2
California Rural Legal Assistance 14-1 to 14-2
Fresno 14-1
Gilroy 14-1
Madera 14-2
Marysville 14-2
Modesto 14-2
Oceanside 14-2
Paso Robles 14-2
Sacramento 14-2
Salinas 14-2
San Francisco 14-1
San Luis Obispo 14-2
Santa Maria 14-2
Santa Rosa 14-2
Stockton 14-2
Californians for Cure 17-1
Campbell, CA
Alcoholics Anonymous (AA) 1-1, 5-1
Kids are Special - Eastfield Ming Quong 1-5, 20-3
Canada College 9-4
Canadian Wheelchair Basketball Association 16-8
Canadian Wheelchair Sports Association 16-9
CanDo.com 21-3
Canine Companions for Independence 13-6
Capitola, CA
13-1, 14-3
A. Index
Career Action Center 26-2
Career Development and Employment Program 26-2
Careerpath 21-5
Caregiver Resource Centers
Del Mar Caregiver Resource Center 13-5
Del Oro Caregiver Resource Center 13-5
Family Caregiver Alliance (FCA) 13-5
Redwood Caregiver Resource Center 13-5
Carmichael, CA
Casa Macsa 9-3
Catholic Charities Immigration Program 14-2, 20-6
Center for Accessible Technology 2-3
Center for Assisted Reproductive Medicine UCLA
Medical Center - Santa Monica 23-3
Center for Computer Assistance to Disabled (C-CAD)
2-3
Center for Independence of the Disabled, Inc. 13-1
Center for Independent Rehabilitative Services (CIRS)
8-4
Center for Injury Prevention 18-2
Center for Male Reproductive Medicine 23-3
Center for SCI Research 17-2
Center on Human Policy 3-3
Centerreach, NY
Disability Resources Monthly 19-2
Disability Resources, Inc. 6-2, 19-2
Central Coast Assistive Technology Center 2-3
13-1, 14-3, 24-4
Central Mental Health 5-2
Central Office Disability Advocates 10-2
Central YMCA 16-4
Centre for Living with Dying 5-5
Chabot College 9-4
Chadds Ford, PA
Independence Dogs, Inc. 13-6
Challenge 2000 21-5, 26-9
Challenge Alaska 25-5
Charles C. Thomas Publishers 23-7
Chaska, MN
HomeTime Video Publications, Inc. 12-6
Chemical Dependency Institute of Northern
California 1-2
Chemical Dependency Recovery Center 1-3
Chesterfield, MO
Science and Humanities Press 3-3
Chevy Chase, MD
Date-Able 23-1
Chicago, IL
J.G. Ferguson Publishing Company 10-7
National Easter Seal Society 6-4
Rehab. Inst. of Chicago Health Resource For
Women 20-8
The American Association of Sex Educators,
Counselors, and Therapists (AASECT) 23-1
Chico, CA
Butte College 9-4
Connections - SCI Support Group 24-1
CSU Chico 9-8
Enloe Rehabilitation Center 24-1
Independent Living Services of Northern
California 13-3
Nor-Cal Mobility 7-5
Children’s Discovery Museum 16-13
6-2, 17-2, 22-3
Christopher Sampson Foundation 10-1
Chrysler Automobility Program 7-2, 7-6
Citrus Heights, CA
16-6, 22-4
City College of San Francisco 9-4
City of San Jose Office of Therapeutic Services 16-6
Civic Auditorium 16-16
Clearing House for Specialized Media and
Technology: State Department of Education 2-4
Client Assistance Program (CAP) 14-3
Closing the Gap 2-4
Club Figazi 16-16
Cocaine Anonymous 1-3
Collaboration on Repair Discoveries (CORD) 17-5
College of Alameda 9-4
College of Marin 9-5
College of San Mateo 9-5
College of the Redwoods 9-5
College of the Sequoias 9-5
College of the Siskiyous 9-5
Colorado Springs, CO
Wheelchair Sports, USA 16-10
Columbia College 9-5
Columbia, MO
Instructional Materials Laboratory, University of
Missouri 26-10
Missouri Model Spinal Cord Injury System 3-3
University of Missouri, Columbia 18-6
Crestwood Company 2-4
Community Association for Rehabilitation 16-2
Community Health Awareness Council 1-3
Community Hospital and Rehabilitation Center of Los
Gatos 11-1
Community Psychotherapy Institute 5-2
Community Resources for Independence 13-1
A-5
A. Index
Community Resources for Independent Living, Inc.
13-2
Community Service Agency of Mountain
View/Vantrans Program 25-2
Community Services Agency of Mountain View and
Los Altos 10-3
Community Solutions 5-6, 20-2
Community United Against Violence 5-6
Concord Pavilion 16-16
Concord, CA
Concord Pavilion 16-16
Independent Living Resource of Contra Costa
County 13-2
Connections - SCI Support Group 24-1
Consumer Affairs State of California 4-1
Continental Airlines 25-12
Continue Care 11-6, 11-7
Contra Costa College 9-5
Coralville, IA
National Amputee Golf Association 16-9
Cornell University 26-3
Cosumnes River College 9-5
Cow Palace 16-16
Craig Hospital 18-6, 21-3
Craig Hospital Research Dept. 3-5, 3-7, 9-9, 22-5, 22-6
Creativity Unlimited Diquisto Center 16-6
Crescent City, CA
Crime Victims
Victim Witness Assistance Program 5-4
Victims of Crime Resource Center 5-4
Crisis Line for the Handicapped 5-1
Crossroads Employment Services 26-2
Cruise Planners 25-5
CSU Bakersfield 9-8
CSU Chico 9-8
CSU Fresno 9-8
CSU Hayward 9-8
CSU Humboldt 9-8
CSU Monterey Bay 9-8
CSU Sacramento 9-8
Cuesta College 9-5
Cupertino Historical Society Museum 16-13
Cupertino Nature Museum 16-14
Cupertino, CA
Career Action Center 26-2
Career Development and Employment Program
26-2
Cupertino Historical Society Museum 16-13
Cupertino Nature Museum 16-14
De Anza College 9-5, 16-1
De Anza College High Tech Training Center
Program 26-2
Flint Center 16-17
A-6
Worldwide Disability Solution Group: Apple
Computer Inc. 2-8
Cure Paralysis Now 17-5, 21-9
Curran Theatre 16-17
D
Dallas, TX
Center for Computer Assistance to Disabled
(C-CAD) 2-3
Parapalegics On Independent Nature Trips
(POINT) 16-10
Daly City, CA
Cow Palace 16-16
Danburn, CT
Travel Turtle Tours 25-6
Danville, CA
Behring Auto Museum 16-13
Database on Spinal Cord Injury Educational
Resources 19-1
Date-Able 23-1
Davies Medical Center 2-4
Davies Symphony Hall 16-17
Dayton, OH
School of Medicine at Wright State University 1-7
Daytop Village 1-3, 20-2
De Anza College 9-5, 16-1
De Anza College High Tech Training Center Program
26-2
Death and Dying
Aris 5-5
Disabled and Alone 5-5
El Camino Hospital:“Living With Loss” 5-5
KARA 5-5
Decatur, GA
Worlds of Travel 25-7
Delmar, NY
Access to Travel Magazine 25-8
Delta Airlines 25-12
Delta Society - National Service Dog Center 13-6
Demos Medical Publishers 23-6
Denver, CO
North American Riding for the Handicapped
Association 16-10
Denville, NJ
Exceptional Parent Magazine 20-4
Department of Alcohol and Drug Services 1-3
Department of Rehabilitation 2-4, 7-6, 21-5
Department of Rehabilitation in No. CA
26-11 to 26-13
Chris Longoria 26-11
A. Index
Antioch 26-11
Auburn 26-11
Berkeley 26-11
Chico 26-11
Crescent City 26-11
District Office 26-11
East Oakland 26-12
Elk Grove 26-11
Eureka 26-11
Fairfield 26-12
Fremont 26-11
Fresno 26-12
Grass Valley 26-12
Hayward 26-12
Menlo Park 26-12
Modesto 26-12
Napa 26-12
Northeast Sacramento 26-13
Oakland 26-12
Placerville 26-12
Pleasant Hill 26-12
Redbluff 26-12
Redding 26-12
Richmond 26-12
Roseville 26-12
Sacramento 26-12
San Bruno 26-13
San Francisco 26-13
San Mateo 26-13
San Rafael 26-13
Santa Clara Valley Medical Center Representative
26-11
Santa Rosa 26-13
South Lake Tahoe 26-13
South Sacramento 26-13
Stockton 26-13
Ukiah 26-13
Vallejo 26-13
Woodland 26-13
Yreka 26-13
Yuba City 26-13
Des Plaines, IL
Bantam-Doubleday-Dell 23-5
Detroit, MI
Foundation for Spinal Cord Injury Prevention,
Care and Cure 18-1
General Motors Corporation Mobility Assistance
Center 7-6
Diablo Valley College 9-5
Directory of Human Services for Santa Clara County
19-1
Disability Advocacy Clinic 21-6
Disability Assistance Advocates 20-6
Disability Resources Agency for Independent Living
13-2
Disability Resources, Inc. 6-2, 19-2
Disability Rights Advocates 14-3
Disability Rights Education of Defense Fund (DREDF)
14-4
Disabled and Alone 5-5, 10-3
Disabled Programmers, Inc (DPI) 2-5
Disabled Sports USA 16-8, 16-9, 16-11
Disabled Sports USA of Northern California 16-6, 22-4
Disabled Student Services 9-4 to 9-8
Discovery Hills Travel 25-5
21-5, 26-9
Domestic Violence
Asian-Americans for Community Involvement
(AACI) 5-6
Battered Women’s Hotline for Lesbians, Bisexuals
and Straight Women 5-6
Community Solutions 5-6
Emergency Shelter Program 5-6
Next Door 5-7
San Francisco Network for Battered Lesbian and
Bisexual Women 5-7
San Mateo County Battered Women’s Services
5-7
Santa Cruz County Women’s Crisis Support 5-7
Shelter Against Violent Environment (SAVE) 5-7
Support Network for Battered Women 5-7
5-8
Downey, CA
Rancho Los Amigos Hospital 18-5
RRTC on Aging with a Spinal Cord Injury 17-5
Downingtown, PA
Accessibility Travel Services 25-3
Driving Specialties Ltd. 7-4
DRM Guide to Disability Resources on the Internet
21-2
The DRM WebWatcher - Spinal Cord Injury 21-2
The DRM WebWatcher Disability Resources Monthly
3-2
DRM WebWatcher’s Sexuality Page 23-9
E
East Palo Alto, CA
Daytop Village 1-3
East Rutherford, NJ
Penguin Putnam Books 23-5
Easter Seals at Timpany Center 11-2
A-7
A. Index
Easter Seals-Oakland: SCI Support Group 24-1
Eastern Amputee Athletic Association 16-8
Eastern PVA Publications Department 12-6
Easy Access Travel 25-5
Economic and Social Opportunities, Inc. 9-3, 13-4,
26-2
Edgerton, WI
7-2, 7-6
The InterNational Council on Infertility Information
Dissemination, Inc. 23-2
El Cajon, CA
American Handcycle Association 16-10
Aqua Sports Association for the Physically
Challenged 16-12
1-4
El Camino YMCA 16-4
El Dorado Hills, CA
Reference Service Press 10-6
Eldridge, CA
Mobility Engineering: Sonoma Developmental
Center 2-5
Elk Grove, CA
Emerging Horizons 21-7
Emeryville, CA
Mobility Systems, Inc. 7-4
Shield Healthcare 8-3
10-3, 26-2
The Enabled Traveler 25-5
Englewood, CO
Center for SCI Research 17-2
Craig Hospital 18-6
Craig Hospital Research Dept. 3-5, 3-7, 9-9, 22-5,
22-6
RRTC on Aging with a Spinal Cord Injury 3-4
English as a Second Language 9-2 to 9-3
Enloe Rehabilitation Center 24-1
Environmental Traveling Companions (ETC) 16-6
Eugene, OR
Mobility International USA 25-7, 25-9, 25-10
TRIPS Inc. 25-6
Eureka, CA
College of the Redwoods 9-5
Humboldt Access Project 13-2
Evans, GA
FertiCare Personal High Amplitude Vibrator 23-2
Evanston, IL
Innotek: National Lekoteck Center 2-5
A-8
Evergreen Valley College 9-6
Everybody’s Airline Directory Website 25-11
Exceptional Children’s Foundation 20-4
Exceptional Parent Magazine 15-1, 20-4
F
Fairfax, VA
20-9
Women with Disabilities Resource Center 20-9
Fairfield, CA
Family and Caregiver Support Group 24-2
Family Caregiver Alliance 20-5
Family Caregiver Alliance (FCA) 13-5, 15-1, 19-1, 19-2,
19-3
Family Health Foundation of Alviso 1-4
Fannie Mae Consumer Resource Center 12-5
Feather River College 9-6
Federal Rehabilitation Services Administration 22-2
Fenix Services Institute 1-4
Fergus Falls, MN
Spinal Cord Society 6-9
FertiCare Personal High Amplitude Vibrator 23-2
The Filmore 16-17
1st Call Plus 25-2
Flagstaff, AZ
American Indian Rehabilitation Research and
Training Center 18-1
Arizona Raft Adventures 25-4
Flint Center 16-17
Fodor Travel Publications 25-9
Follow Me Outdoors 21-7
Foothill College 9-6
Ford Motor Corporation Mobility Motoring Program
7-6
Fort Bragg, CA
Fort Lauderdale, FL
Medically Escorted Cruises and Tours 25-6
Fort Wayne, IN
Paralysis Care Network 6-6, 18-4, 22-7
Fort Worth, TX
REACH 2-6
Foster City, CA
Bayshore 25-1
Foundation Center 2-8
Foundation for Spinal Cord Injury Prevention, Care
and Cure 18-1
Framingham, MA
NARPPS National Directory of Rehabilitation
Professionals 19-2
A. Index
National Association of Rehabilitation
Professionals in the Private Sector 19-2
Frederick, MD
Aspen Publishers, Inc. 22-5
FREED 13-2
Freedom Access 7-4
Fregus Falls, MN
Fremont, CA
Ohlone College 9-7
S.M.A.R.T. Recovery
(Self Management and Recovery Training) 1-6
5-3, 19-5
Fresno City College 9-6
Fresno Community Hospital and Medical Center 24-2
Fresno, CA
10-2
California Rural Legal Assistance 14-1
CSU Fresno 9-8
Fresno City College 9-6
Fresno Community Hospital and Medical Center
24-2
Leon S. Peters Rehab Center 2-5
SCI Support Group 24-2
Friends Outside 14-4
Ft. Lauderdale, FL
American Wheelchair Bowling Association 16-9
G
Gaithersburg, MD
Aspen Publishers, Inc. 2-9, 3-7, 23-7
Gateway 1-4
Gavilan College 9-6, 16-1
Gazette International 22-2, 22-3
General Motors Corporation Mobility Assistance
Center 7-6
Georgia Regional Spinal Cord Injury Care System 21-4
Geriatric Home Care Specialists 11-7
Gilroy, CA
Gavilan College 9-6, 16-1
Medshares - Gilroy 11-3
Salvation Army Corps 12-4
3-2, 14-7, 26-6
Global Access Travel 25-11
Gloucester, Ontario
Canadian Wheelchair Basketball Association 16-8
Canadian Wheelchair Sports Association 16-9
Golden Gate Theatre 16-17
GORP (Great Outdoors Recreational Program) 21-7
Governor’s Committee for Employment of Disabled
Persons 26-3
The Graham Consulting Group 26-3
Grass Valley, CA
FREED 13-2
Greyhound Bus lines 25-13
Guardian Rehabilitation Center 16-6
H
Half the Planet.com 21-7
Handicapped Scuba Association 16-12
Handyman Connection 12-5
Hanford, CA
Kings Regional Occupation Program 9-2
Happy Wheelers 24-2
Hartnell College 9-6
Hastings, MN
National Wheelchair Softball Association 16-11
Hayward, CA
Chabot College 9-4
Community Resources for Independent Living,
Inc. 13-2
CSU Hayward 9-8
Volunteer Center Alameda County/Tri-Valley 26-7
HDI Publishers 26-10
Head and Spinal Cord Injury Prevention Project 18-2
Health Care to the Homeless 11-2
Healthfinder 21-2
HealthSouth Press 3-7, 9-10, 22-5
Heath Resource Center 6-3, 9-1
Heathrow, FL
AAA Traffic Safety and Engineering 7-7
Help Santa Clara County 4-1, 19-2
Helping Hands - Monkey Helpers for the Disabled
13-7
Henderson, MN
Closing the Gap 2-4
History Museums of San Jose 16-15
Hollister, CA
Home Health Agencies 11-6 to 11-7
Home Health Plus 11-6
Homeowners and Renters Assistance 10-3
HomeTime Video Publications, Inc. 12-6
Hope Rehabilitation Services Counseling Center 5-2,
5-8
A-9
A. Index
Horizon Services, Inc. 1-4
Horizon South 1-4
Horsham, PA
No Limits Communications 19-2, 22-3
New Mobility Magazine 19-2, 22-3
Housing Authority of the County of Santa Clara 12-2
Housing for Independent People (HIP) 12-2
Houston, TX
Database on Spinal Cord Injury Educational
Resources 19-1
HDI Publishers 26-10
3-1, 13-4, 18-2
International Medical Society of Paraplegia
(US Office) 6-3
Model SCI Systems Compendium of Education
and Training Materials 18-3
National Database of Educational Resources for
SCI 3-5, 22-6
Rehabilitation Research Training Center at Baylor
College of Medicine 1-8
RRTC in Community Integration for Individuals
with SCI 3-6, 17-4
The Institute for Rehabilitation and Research
(TIRR) 3-7, 9-10, 9-11, 18-7, 19-1, 22-6
HUD User 12-6
Humboldt Access Project 13-2
Hunter House Publishers, Inc. 2-9
I
ILR Program on Employment and Disability 26-3
Impact Publishers 3-4
In-Home Support Services (IHSS) 3-1, 11-2
In-Home Support Services Website 3-2
Independence Adult Education Center 9-1
Independence Bank 21-5, 26-9
Independence Dogs, Inc. 13-6
Independent Living Center 13-2
Independent Living Center of Kern County 13-2
3-1, 13-4, 18-2
Independent Living Resource Center 13-2
5-3, 13-2, 14-4
Independent Living Resource of Contra Costa County
13-2
Independent Living Services of Northern California
13-3
Independent Living Services of Redding 13-3
Indian Health Center of Santa Clara Valley 20-4
Indianapolis, IN
U.S. Rowing Association 16-12
Information and Referral Services 25-1
A-10
Information and Referral Services, Inc. 19-3
Innotek: National Lekoteck Center 2-5
Institute of Career Development (Division of
Goodwill) 26-3
Instructional Materials Laboratory, University of
Missouri 26-10
Interim Health Care 11-6
Internal Revenue Service 10-3
International Cruise Concepts 25-6
International Medical Society of Paraplegia (US
Office) 6-3
6-3, 20-7
International Wheelchair Road Racers Club, Inc. 16-11
Internet Resources
The DRM WebWatcher 3-2
ABLEDATA 21-2
Access Tours, Inc. 21-6
AccessAble Travel Source 21-7, 25-11
Accessible Travel 21-6
Accessible Travel Section 25-11
Administrators in Medicine (AIM) DocFinder 11-8
American Association of Physical Medicine and
Rehabilitation (AAPM&R) 11-8
American Board of Medical Specialties (ABMS)
Certified Doctor Verification Service 11-8
American Medical Association (AMA) Physician
Select On-Line Doctor Finder 11-8
ArtDis - Art and Disabilities Home Page 21-6
CanDo.com 21-3
Careerpath 21-5
Challenge 2000 21-5, 26-9
Collaboration on Repair Discoveries (CORD) 17-5
Craig Hospital 21-3
Cure Paralysis Now 17-5, 21-9
Disability Advocacy Clinic 21-6
Diversity Direct National Job Opportunities
Listing 21-5, 26-9
DRM Guide to Disability Resources on the
Internet 21-2
The DRM WebWatcher - Spinal Cord Injury 21-2
DRM WebWatcher’s Sexuality Page 23-9
Everybody’s Airline Directory Website 25-11
Follow Me Outdoors 21-7
Georgia Regional Spinal Cord Injury Care System
21-4
Global Access Travel 25-11
GORP (Great Outdoors Recreational Program)
21-7
Half the Planet.com 21-7
Healthfinder 21-2
Help Santa Clara County 19-2
A. Index
In-Home Support Services Website 3-2
Independence Bank 21-5, 26-9
Job Accommodation Network (JAN) 21-5
Link2Care 21-10
Mayo Health Clinic Health Oasis 21-7
MedicineNet 21-8
Medline - PubMed, Internet Grateful Med 21-8
Medscape 21-8
The Miami Project to Cure Paralysis 21-9
21-3
Model Construct for Community Integration in
The Monster Board 21-5
Mount Sinai Model Spinal Cord Injury System
21-3
21-6, 26-9
National Center on Physical Activity and
Disability 11-8
National Father’s Network 15-3
National Information Center for Children and
Youth with Disabilities (NICHCY)
15-2, 20-5, 21-4
National Institutes of Health 21-2
National Job Opportunities - Diversity Direct 21-5
National Library of Medicine 21-2
15-3, 21-10
National Rehabilitation Information Center
(NARIC) 6-5, 18-3, 19-4, 21-4
National Spinal Cord Injury Association 21-8
National Transition Alliance for Youth with
Disabilities (NTA) 15-3
New Mobility 21-4, 21-10
New Mobility’s Jobline 21-6, 26-9
Northeast Ohio Regional Spinal Cord Injury
System 21-3
Northwest Regional Spinal Cord Injury System
21-3
Ourtools.com 21-4
Paralinks 21-8
Paralyzed Veterans of America 21-9
Pharmaceutical Information Network 21-8
Rehab International 21-4
Rehabilitation Research Center for Traumatic
Brain and Spinal Cord Injury 21-9
21-3
SCI Connection 21-10
SCI Ring 21-2
Sexual Health Network 23-9
Sexuality and Spinal Cord Injury Bibliography:
Medical College of Wisconsin Website 23-9
Shepherd Hospital 21-4
Sibling Support Project 15-4
Spinal Cord Injury - For Your Information 22-5
Spinal Cord Injury Information Network 3-2, 21-1
SpineWire 17-6, 21-9
Talk City 21-10
University of Minnesota Disability Service Careers
Online 21-6, 26-9
University of Washington 21-3
US Food and Drug Administration 21-8
Virtual Paraplegia 21-1
WebMD 21-7
Wheelchair Accessible Home Clearinghouse 12-4
Wheelweb.com 21-9
Wired on Wheels 21-10
Women with Disabilities Resource Center 19-5
Irvine, CA
Reeve Irvine Research Center 17-3
Ithaca, NY
Cornell University 26-3
ILR Program on Employment and Disability 26-3
J
J.G. Ferguson Publishing Company 10-7
Jackson Heights, NY
Nurses 6-1
Psychologists and Social Workers 6-1
American Paraplegia Society 6-1, 17-1
Eastern PVA Publications Department 12-6
JC Publications 19-3
Jefferson Medical College 18-7
Job Accommodation Network (JAN) 19-4, 21-5, 26-4
John Muir Rehabilitation Center 11-2
John Muir Therapy 7-2
John Wiley and Sons 12-5
JWT Specialized Communications 26-4
K
KARA 5-5, 20-3
Karolinska Institute 17-2
Kato and Feder 14-4
Kensington, MD
National Family Caregiver Association 15-2
Kent Waldrep National Paralysis Foundation 6-3, 17-2
Steve Palermo Chapter 6-3, 17-2
A-11
A. Index
Kentfield, CA
College of Marin 9-5
Kernes Memorial Pool 16-3
Kessler Institute for Rehabilitation 3-7, 9-10, 18-6, 23-9
Kids are Special - Eastfield Ming Quong 1-5, 20-3
Kings Regional Occupation Program 9-2
Kings River College 9-6
Kingston, RI
U.S. Cerebral Palsy Athletic Association 16-9
L
La Raza Centro Legal 14-5, 20-7
Lake Tahoe College 9-6
Lakewood, CO
Association of Disabled American Golfers 16-9
Laney College 9-6
Las Positas College 9-6
Lassen College 9-6
Lawrence, KS
Beach Center on Families and Disabilities
15-1, 20-4
Research and Training Center on Independent
Living (RTC/IL) 3-5
Leawood, KS
Steve Palermo Chapter 6-3
Legal Aid Society of Santa Clara County 14-5
Leon S. Peters Rehab Center 2-5
Levittown, PA
U.S. Wheelchair Weightlifting Federation 16-12
Lexington, KY
Adaptive Device Locator System Academic
Software, Inc. 2-2
Library of Congress 2-9
Life Planning for Persons with Disabilities 10-4
Limited Examination and Application Program (LEAP)
26-4
Lincare, Inc. 8-2
Link2Care 21-10
Linkages/Multipurpose Senior Service Program
(MSSP) 11-2
Literacy Alliance 9-3
Little Rock, AR
Arkansas Spinal Cord Commission 3-2, 22-7
Littleton, CO
International Cruise Concepts 25-6
Livermore, CA
Las Positas College 9-6
Logan, UT
Utah Assistive Technology Program 3-4
Londonderry, NH
American Driver and Traffic Safety Education
Association (ADTSEA) 7-5
A-12
Longview, TX
American Syringomyelia Alliance Project (ASAP)
6-2
Los Altos Hills, CA
Foothill College 9-6
Los Angeles, CA
Center for Male Reproductive Medicine 23-3
Exceptional Children’s Foundation 20-4
JWT Specialized Communications 26-4
National Job Opportunities - Diversity Direct 26-4
UCLA School of Medicine 23-3
Los Gatos, CA
Community Hospital and Rehabilitation Center of
Los Gatos 11-1
Guardian Rehabilitation Center 16-6
Stride Program 1-7
Therapy in Your Home 11-5
Loving Hands Homecare 11-7
Robert Ludlow, Esq. 14-5
M
M & M Home Medical 8-2
Maddak Inc. 22-1
Madera, CA
Madison, WI
2-7, 2-10
Mainstream, Inc. 22-2
Malden, MA
Access First Travel 25-3
Malibu, CA
Leonard Group 22-3
Miramar Communications 9-10, 25-8
Marin Center for Independent Living 13-3
Marines Memorial Club 16-17
Marion, OH
Marionjoy Rehabilitation Hospital 3-6
Mariposa Lodge Alcohol Recovery Homes, Inc. 1-5
Marysville, CA
Yuba College 9-8
Matched Caregivers 11-6
15-1, 20-5
Mayo Health Clinic Health Oasis 21-7
McLaughlin House 12-2
Medic Alert Foundation 4-1
Medical College of Virginia 18-7
Medically Escorted Cruises and Tours 25-6
MediCare Information 10-4
MedicineNet 21-8
Medline - PubMed, Internet Grateful Med 21-8
A. Index
Medscape 21-8
Medshares - Gilroy 11-3
Medshares - San Jose 11-3
Mendocino College 9-6
Menlo Park, CA
Mental Health Advocacy Project 4-2, 5-8, 14-5
Mental Health Assn of San Francisco 5-9
Merced College 9-7
Merritt College 9-7
Mexican American Community Services Agency
(MACSA) 20-7, 26-4
Miami Project to Cure Paralysis 6-4, 18-3, 23-5
The Miami Project to Cure Paralysis 17-3, 21-9
The Miami Project Male Fertility Program 23-2
Miami, FL
ADA Vacations Plus 25-4
Miami Project to Cure Paralysis 6-4, 18-3, 23-5
The Miami Project to Cure Paralysis 17-3
The Miami Project Male Fertility Program 23-2
University of Miami 18-6
Mid Peninsula Home Health 11-6
Mid-Peninsula Housing Management 12-2
Middleboro, MA
U.S. Wheelchair Swimming 16-12
21-3
Mills Hospital Pool 16-3
Mills Peninsula Hospital 11-3
Milpitas Housing Services 12-3
Milpitas, CA
5-8
Milwaukee, WI
Crestwood Company 2-4
Minneapolis, MN
The PACER Center 15-2
Ablenet 2-1
Wilderness Inquiry 25-7
Miramar Communications 9-10, 25-8
Mission College 9-7
Missouri Model Spinal Cord Injury System 3-3
Mobility Engineering: Sonoma Developmental Center
2-5
Mobility International USA 25-7, 25-9, 25-10
Mobility Systems, Inc. 7-4
Mobility Training Program (Bus) 25-3
Model Construct for Community Integration in Spinal
Cord Injury 21-3
Model SCI Systems Compendium of Education and
Training Materials 18-3
Modesto Junior College 9-7
Modesto, CA
Disability Resources Agency for Independent
Living 13-2
Modesto Junior College 9-7
The Monster Board 21-5
Monterey Bay Aquarium 16-14
Monterey Peninsula Junior College 9-7
Monterey, CA
Augmentative Communication News 2-2
Kernes Memorial Pool 16-3
Monterey Bay Aquarium 16-14
Monterey Peninsula Junior College 9-7
Montgomery Theatre 16-18
Morgan Hill, CA
Community Solutions 20-2
Morgantown, WV
Job Accommodation Network (JAN) 19-4, 26-4
Mount Sinai Model Spinal Cord Injury System 21-3
Mount Sinai School of Medicine 18-7
Mountain View, CA
Adult and Child Guidance Center 1-1
Chemical Dependency Recovery Center 1-3
Community Health Awareness Council 1-3
Community Service Agency of Mountain
View/Vantrans Program 25-2
Community Services Agency of Mountain View
and Los Altos 10-3
El Camino Hospital Chemical Dependency
Services 1-4
El Camino YMCA 16-4
Mid Peninsula Home Health 11-6
Rehab Specialists, Inc. 8-3
10-5
Shoreline Amphitheatre 16-19
Support Network for Battered Women 5-7, 20-8
Mountain Winery 16-18
Mt. Diablo Facility of Rehabilitation 11-3
Mt. Eden, CA
Horizon Services, Inc. 1-4
Museum of Modern Art 16-14
MV Transportation 25-2
N
Napa, CA
Volunteer Center of Napa County 26-8
Narcotics Anonymous 1-5
NARPPS National Directory of Rehabilitation
Professionals 19-2
A-13
A. Index
National Ability Center 25-6
National Accessible Apartment Clearinghouse 12-3
National Amputee Golf Association 16-9
National Association of Protection and Advocacy 10-4
National Association of Rehabilitation Professionals in
the Private Sector 19-2
National Business and Disability Council 21-6, 26-9
National Center on Physical Activity and Disability
11-8
National Clearing House of Rehabilitation Training
Materials 18-3
National Council on Alcohol and Drug Dependency
(NCADD) 1-5
National Council on Independent Living (NCIL) 13-4
3-5, 22-6
National Easter Seal Society 6-4
National Family Caregiver Association 15-2
National Father’s Network 15-3
National Foundation of Wheelchair Tennis 16-10
National Information Center for Children and Youth
with Disabilities (NICHCY) 15-2, 20-5, 21-4
National Institute on Disability and Rehabilitation
Research (NIDRR) 6-4, 18-5
National Institutes of Health 21-2
21-5, 26-4
National Library of Medicine 21-2
National Ocean Access Project 16-12
National Organization on Disability (NOD) 6-4
15-3, 21-10
National Rehabilitation Association 6-5
6-5, 18-3, 19-4, 21-4
National SCI Hotline 6-6
National Seating and Mobility, Inc. 8-3
National Spinal Cord Injury Association 6-5, 21-8,
22-4, 23-8, 24-3, 25-10
National Spinal Cord Injury Association 800-HelpLine
19-3
National Spinal Cord Injury Statistical Center 6-6
National Transition Alliance for Youth with Disabilities
(NTA) 15-3
National Wheelchair Basketball Association 16-8
National Wheelchair Softball Association 16-11
19-5, 20-9
Neverland Adventures 25-6
New Ability Driving Systems 7-5
New Mobility 19-2, 21-4, 21-10, 22-3
New Mobility’s Jobline 21-6, 26-9
A-14
New Windsor, MD
The Very Special Traveler 25-10
New York, NYDemos Medical Publishers 23-6
Disabled and Alone 5-5, 10-3
Foundation Center 2-8
Rehabilitation International 6-7
Society for the Advancement of Travelers with
Handicaps 25-9
The Sex Information and Education Council of
the US (SIECUS) 23-2
WE Magazine 22-4
Newbury Park, CA
Access to Recreation, Inc 22-1
Newport News, VA
Patient Advocate Foundation 11-4, 14-6
Newton, CT
The Taunton Press 12-5
Next Door 5-3, 5-7
No Limits Communications 19-2, 22-3
Nor-Cal Mobility 7-5
North American Riding for the Handicapped
Association 16-10
North Bellmore, NY
Eastern Amputee Athletic Association 16-8
North Coast Rehabilitation Center 11-3
Northeast Ohio Regional Spinal Cord Injury System
21-3
Northern California Fertility Medical Center 23-3
Northern Cartographic, Inc. 25-8
Northwest Airlines 25-12
Northwest Regional Spinal Cord Injury System 21-3
Nottingham, NH
Cruise Planners 25-5
Nova Bridge Program 26-5
Novato, CA
15-1, 20-5
O
O'Connor Home Health Care 11-6
Oakland Coliseum 16-20
Oakland, CA
10-2
Disability Rights Advocates 14-3
Easter Seals-Oakland
Laney College 9-6
Merced College 9-7
Merritt College 9-7
Oakland Coliseum 16-20
A. Index
Paramount Theatre 16-18
Protection and Advocacy 14-6
UCP of the Golden Gate 20-9
United Cerebral Palsy 2-8
U.S. Veterans Administration 10-6, 20-11
World Institute on Disability (WID) 6-9, 19-5
Occupational Solutions 26-5
Oceanside, CA
Office of Amtrak Access 25-8
Office of Minority Health Resource Center 19-4, 20-3
Office on ADA 10-4
Ohlone College 9-7
Olsten Home Health Services 11-6
Organization for the Promotion of Access and Travel
for the Handicapped 25-7
Oriskany Falls, NY
Barrier Breakers 26-10
Orpheum Theatre 16-18
Ourtools.com 21-4
Outreach 25-2
P
Pac Bell Park 16-20
The PACER Center 15-2Pacific Bell Universal Lifeline
4-2
Pacific Disability and Business Technical Assistance
Center 14-6
Pacific Gas and Electric 4-2
Palo Alto Family YMCA 16-4
Palo Alto Health Care System (Veterans) 26-5
Palo Alto Mediation Program 12-3
Palo Alto Veterans Administration Medical Center
(PAVA) 20-11
Palo Alto, CA
Bay Area and Western Paralyzed Veterans of
America 20-10
Betty Wright Swim Center 16-2
Community Association for Rehabilitation 16-2
KARA 5-5, 20-3
Matched Caregivers 11-6
Palo Alto Family YMCA 16-4
Palo Alto Health Care System (Veterans) 26-5
Palo Alto Mediation Program 12-3
Palo Alto Veterans Administration Medical Center
(PAVA) 20-11
REACH (Foothill College) 11-4
Stanford Home Care 11-6
Stride Program 1-7
Veterans Administration Medical Center Palo Alto
7-3
Vets Next Step Center 20-11
Pamphlets
Attendant Care Services - Fact Sheet #7 3-2
A Checklist for Evaluating Personal Care Assistant
Services 3-3
Hiring and Management of Personal Care
Assistants for Individuals with Spinal Cord
Injury 3-3
Male Reproductive Function after Spinal Cord
Injury 23-8
Personal Care Assistants - SCI Information Sheet
#6 3-4
Personal Care Assistants: How to Find, Hire and
Keep Them 3-4
Preventing Secondary Medical Complications: A
Guide for Personal Assistance to People with
Sexuality After Spinal Cord Injury 23-8
Sexuality in Males with Spinal Cord Injury 23-8
A Step-by-Step Guide to Training and Managing
Personal Assistants 3-5
Paralinks 21-8
Paralysis Care Network 6-6, 18-4, 22-7
Paralysis Society of America 6-6
Paralyzed Veterans of America 3-8, 6-7, 9-10, 18-4,
21-9, 22-6
Paralyzed Veterans of America - Publications Center
1-8
Paralyzed Veterans of America SCI Education and
Training Foundation 17-3
Paramount Theatre 16-18
Parapalegics On Independent Nature Trips (POINT)
16-10
Parents Educational and Resource Link Services
(PEARLS) 19-4, 20-5
Parents Helping Parents 15-2, 19-4, 20-6
Park City, UT
National Ability Center 25-6
U.S. Disabled Ski Team 16-11
Participants in Progress 24-3
Paso Robles, CA
Pathway House Residential Treatment Center 1-5
Pathway Outpatient Program 1-6
Patient Advocate Foundation 11-4, 14-6
Paul H. Brookes Publishing Co. 20-10, 23-6
PAWS With A Cause 13-6
PDQ (Physically Disabled Queers) 24-2
Penguin Putnam Books 23-5
Peninsula Family YMCA 16-4
Peninsula ReCare 26-5
Pequannock, NJ
Maddak Inc. 22-1
A-15
A. Index
Periodicals
Ableware 22-1
Accent on Living 22-1
Access to Recreation, Inc. 22-1
Access to Travel Magazine 25-8
Active Living The Health, Fitness and Recreation
Magazine for People with a Disability 22-1
American Rehabilitation Magazine 22-2
Disability, Pregnancy, and Parenthood
International 15-4, 15-7
Employment in the Mainstream 22-2
The Handicapped Travel Newsletter 25-9
InterAct 22-2
International Ventilator Users Network News 22-2
The Itinerary 25-9
New Mobility 19-2, 22-3
Open World 25-9
Over the Rainbow 25-9
Paraplegia News 22-3
Parenting with a Disability 15-7
Parenting with a Disability Bulletin 15-7
PeopleNet 23-7
Progress in Research 22-3
Rehabilitation Gazette 22-3
Sports and Spokes 22-4
Travel After Spinal Cord Injury 25-10
Travel Notes 25-10
Ventures 22-4
The Very Special Traveler 25-10
WE Magazine 22-4
Pharmaceutical Information Network 21-8
Philadelphia, PA
Phoenix, AZ
PVA Publications 22-3, 22-4
Thumbs Up - The Mike Utley Foundation 17-4
Physically Unlimited 24-3
Pittsburgh, PA
University of Pittsburgh 18-7
Placer Independent Resource Services 13-3
Placerville, CA
Planned Parenthood 20-8
Planned Parenthood Golden Gate 20-10
Pleasant Hill, CA
Diablo Valley College 9-5
Mt. Diablo Facility of Rehabilitation 11-3
Pleasanton, CA
Pools, Accessible 16-1 to 16-5
A-16
Portugese Organization for Social Services and
Opportunities (POSSO) 20-6
Power Soccer 16-10
President’s Committee on Employment of People
with Disabilities 6-7, 26-5
Priceless Rent-A-Car 25-11
Project Action 25-11
Project Hired 26-6
Project Link Center for Assistive Technology 2-6
Project Match 12-3
Protection and Advocacy 14-6
Protrans 25-3
Public Guardian Office (Conservatorship) 10-4
PVA Publications 22-3, 22-4
Q
Quincy, CA
Feather River College 9-6
R
Radcliffe Medical Press 23-6
Rainbow Wheels 25-11
Rancho Cordova, CA
10-2
RCH, Inc. 16-3
REACH 2-6
REACH (Foothill College) 11-4
Reading, MA
Addison-Wesley-Longman Publishing Company
2-9
Red Morton Center Redwood City Parks, Recreation &
Community Services 16-7
Redbluff, CA
Redding, CA
10-2
Independent Living Services of Redding 13-3
Rehabilitation Education Assistance Program
(REAP) 26-12
Shasta College 9-7
Redwood Amphitheatre at Paramount’s Great
America, Santa Clara 16-18
Redwood Caregiver Resource Center 13-5, 14-6
Redwood City Parks, Recreation & Community
Services 16-7
Redwood City, CA
Canada College 9-4
Daytop Village 1-3
A. Index
Red Morton Center: Redwood City Parks,
Recreation & Community Services 16-7
Redwood City Parks, Recreation & Community
Services 16-7
Sequoia YMCA 16-5
Reedley, CA
Kings River College 9-6
Reeve Irvine Research Center 17-3
Reference Service Press 10-6
Rehab International 21-4
Rehab. Inst. of Chicago Health Resource For Women
20-8
5-3, 9-2, 11-4, 26-6
Rehabilitation Engineering Research Center on
Accessible and Universal Design in Housing 12-3
Rehabilitation Institute of Chicago Education and
Training Center 1-7
Rehabilitation International 6-7, 18-4
Rehabilitation Research Center for Traumatic Brain
and Spinal Cord Injury 3-3, 11-4, 13-4, 18-4, 18-5,
19-5, 21-9, 22-2, 22-5, 24-3, 24-4
Resource Line 18-4
Rehabilitation Research Training Center at Baylor
College of Medicine 1-8
Rehabilitation Services Administration (RSA) 10-4
Renton, WA
Delta Society - National Service Dog Center 13-6
Reproductive Science Center of the San Francisco Bay
Area 23-3
Request Rehabilitation Engineering Center 2-7
Research and Training Center on Independent Living
(RTC/IL) 3-5
RESNA 2-7
RESOLVE - The National Infertility Association 23-2
Resource Center on Substance Abuse Prevention and
Disability: National Clearinghouse for Alcohol
and Drug Information 1-8
Resources for Independent Living 13-3
Richmond, CA
Richmond, VA
Ridley Park, PA
Accessible Journeys, Inc. 25-4, 25-10
Ripon, CA
C & C Creative Concepts 25-8
Riverside, CA
Easy Access Travel 25-5
Rocklin, CA
American Chronic Pain Association 6-1
Sierra College 9-7
Rockville, MD
Disabled Sports USA 16-8, 16-9, 16-11
HUD User 12-6
National Ocean Access Project 16-12
Resource Center on Substance Abuse Prevention
and Disability: National Clearinghouse for
Alcohol and Drug Information 1-8
21-3
Rohnert Park, CA
Assistance Dog Institute 13-6
Sonoma State University 9-9
Roseville, CA
Northern California Fertility Medical Center 23-3
RRTC in Community Integration for Individuals with
SCI 3-6, 17-4
RRTC on Aging with a Spinal Cord Injury 3-4, 17-5
RRTC on Secondary Conditions of Spinal Cord Injury
17-5
RRTC Training Office 23-8
S
S.M.A.R.T. Recovery (Self Management and Recovery
Training) 1-6
Sacramento Area Easter Seals Society 2-7
Sacramento, CA
The Enabled Traveler 25-5
American River College 9-4
Assistive Technology (AT) Network 2-2
C.A.T.S. 2-3
California Children’s Services 20-2
California Foundation for Independent Living
Centers (CFILC) 13-3
California Rehabilitation Association (CRA) 6-2
Central Office Disability Advocates 10-2
Clearing House for Specialized Media and
Technology: State Department of Education
2-4
Client Assistance Program (CAP) 14-3
Cosumnes River College 9-5
Crossroads Employment Services 26-2
CSU Sacramento 9-8
Department of Rehabilitation 2-4, 26-12, 26-13
26-2
Freedom Access 7-4
Governor’s Committee for Employment of
Disabled Persons 26-3
Head and Spinal Cord Injury Prevention Project
18-2
Life Planning for Persons with Disabilities 10-4
A-17
A. Index
Limited Examination and Application Program
(LEAP) 26-4
Participants in Progress 24-3
Resources for Independent Living 13-3
Sacramento Area Easter Seals Society 2-7
Social Security Disability Advocates 10-5
University of California Davis Medical Center 11-6
Victims of Crime Resource Center 14-8
Vocational Program - Goodwill Industries of
Sacramento 26-7
Volunteer Center of Sacramento and Yolo
Counties 26-8
Salinas Adult School 26-6
Salinas Municipal Pool 16-3
Salinas, CA
13-1, 14-3, 24-4
Hartnell College 9-6
Rehabilitation Education Assistance Program
(REAP) 5-3, 9-2, 11-4, 26-6
Salinas Adult School 26-6
Salinas Municipal Pool 16-3
Women with Disabilities Support Group 24-4
Salvation Army - Social Services 12-4
San Antonio, TX
HealthSouth Press 3-7, 9-10, 22-5
San Bruno, CA
Skyline College 9-7
San Clemente, CA
Handicapped Scuba Association 16-12
National Foundation of Wheelchair Tennis 16-10
San Diego, CA
Assistive Device Assessment Program (ADAP) 2-2
Neverland Adventures 25-6
Sharp Rehabilitation Center 23-4
Urological Physicians of San Diego 23-4
VA Healthcare Systems, San Diego 23-4
Well Spouse Foundation 15-3
San Francisco General Hospital 24-4
Bisexual Women 5-7
San Francisco State University 9-8
San Francisco Wax Museum 16-14
San Francisco, CA
American Civil Liberties Union 14-1
American Conservatory Theatre (ACT) 16-15
Apex Driving School 7-1
Bay Area Association of Disabled Sailors 16-5
California Academy of Sciences 16-13
California Children’s Services 20-2
A-18
10-2
Center for Injury Prevention 18-2
City College of San Francisco 9-4
Civic Auditorium 16-16
Club Figazi 16-16
Cocaine Anonymous 1-3
Curran Theatre 16-17
Davies Medical Center 2-4
Davies Symphony Hall 16-17
Environmental Traveling Companions (ETC) 16-6
Family Caregiver Alliance (FCA) 13-5, 15-1, 19-1,
19-2, 19-3, 20-5
The Filmore 16-17
Golden Gate Theatre 16-17
Independent Living Resource Center of San
Francisco 5-3, 13-2, 14-4
Kato and Feder 14-4
La Raza Centro Legal 14-5, 20-7
Linkages/Multipurpose Senior Service Program
(MSSP) 11-2
Marines Memorial Club 16-17
Mental Health Assn of San Francisco 5-9
Museum of Modern Art 16-14
Orpheum Theatre 16-18
Pac Bell Park 16-20
Planned Parenthood Golden Gate 20-10
RCH, Inc. 16-3
San Francisco General Hospital 24-4
Bisexual Women 5-7
San Francisco State University 9-8
San Francisco Wax Museum 16-14
Schneider and McCormac Attorneys at Law 14-7
St. Mary’s Hospital Rehabilitation Center 11-5
Theatre on the Square 16-19
3-Com Park 16-20
Trauma/Injury Support Group 24-4
UCSF Mount Zion Urology Faculty Practice
Male Fertility Clinic 23-4
University of California, San Francisco 9-9
Volunteer Center of San Francisco 26-8
Volunteerism Project 26-9
Warfield, The 16-19
San Joaquin Delta College 9-7
San Jose Adult Education Center 9-2
San Jose Arena 16-20
San Jose Center for Performing Arts 16-18
A. Index
San Jose City College 9-7, 16-2
San Jose Civic Auditorium 16-19
San Jose Museum of Art 16-15
San Jose State University 9-9
San Jose State University Occupational Therapy Clinic
11-5
San Jose Veterans Center 5-3, 20-11
San Jose, CA
Abba Medical Services, Inc. 8-1
Access Program (Acute Crisis Care & Entry Into
System Services) 5-2, 5-8
Adaptive Driving Aid 7-1, 7-3
Adult & Child Guidance Center of Santa Clara
Valley 1-1, 5-2, 20-6, 20-7
Adult Protective Services 14-1
Alexian Home Care 11-6
Alliance for Community Care 5-8
American Medical and Equipment Supply, Inc. 8-2
Apria Healthcare, Inc. 8-2
Aris 5-5, 12-1
Asian Law Alliance 14-1
Asian-Americans For Community Involvement
(AACI) 1-2, 5-1, 5-6, 9-2, 11-1, 12-1, 20-1, 26-1
Bay Area Coalition for the Employment of
Persons with Disabilities (BACED) 26-1
4-1, 20-3, 24-2
Blossoms Prenatal Substance Abuse Program 1-2
Brannons Medical 8-1
C.A.P.S. 1-2
California Children’s Services 4-1, 10-1, 11-1, 20-2
Casa Macsa 9-3
14-2, 20-6
Center for Independent Rehabilitative Services
(CIRS) 8-4
Central Mental Health 5-2
Central YMCA 16-4
Chemical Dependency Institute of Northern
California 1-2
Children’s Discovery Museum 16-13
City of San Jose Office of Therapeutic Services
16-6
Community Psychotherapy Institute 5-2
Continue Care 11-6
Creativity Unlimited Diquisto Center 16-6
Crisis Line for the Handicapped 5-1
Department of Alcohol and Drug Services 1-3
Directory of Human Services for Santa Clara
County 19-1
Disability Assistance Advocates 20-6
Disabled Programmers, Inc (DPI) 2-5
Easter Seals at Timpany Center 11-2
9-3, 13-4, 26-2
10-3
Evergreen Valley College 9-6
Expressions Unlimited 19-1
Family and Caregiver Support Group 24-2
Friends Outside 14-4
The Graham Consulting Group 26-3
Handyman Connection 12-5
Health Care to the Homeless 11-2
History Museums of San Jose 16-15
5-2, 5-8
Horizon South 1-4
Housing Authority of the County of Santa Clara
12-2
Housing for Independent People (HIP) 12-2
In-Home Support Services (IHSS) 3-1, 11-2
Independence Adult Education Center 9-1
Indian Health Center of Santa Clara Valley 20-4
Information and Referral Services 25-1
Information and Referral Services, Inc. 19-3
Institute of Career Development (Division of
Goodwill) 26-3
Interim Health Care 11-6
JC Publications 19-3
Legal Aid Society of Santa Clara County 14-5
Lincare, Inc. 8-2
Literacy Alliance 9-3
Mariposa Lodge
Alcohol Recovery Homes, Inc. 1-5
McLaughlin House 12-2
Medshares - San Jose 11-3
Mental Health Advocacy Project 4-2, 5-8, 14-5
Mexican American Community Services Agency
(MACSA) 20-7, 26-4
Mid-Peninsula Housing Management 12-2
Montgomery Theatre 16-18
National Council on Alcohol and Drug
Dependency (NCADD) 1-5
National Seating and Mobility, Inc. 8-3
New Ability Driving Systems 7-5
Next Door 5-3, 5-7
O'Connor Home Health Care 11-6
Occupational Solutions 26-5
Olsten Home Health Services 11-6
Outreach 25-2
Parents Educational and Resource Link Services
(PEARLS) 19-4, 20-5
Pathway House Residential Treatment Center 1-5
PDQ (Physically Disabled Queers) 24-2
Physically Unlimited 24-3
A-19
A. Index
Planned Parenthood 20-8
Portugese Organization for Social Services and
Opportunities (POSSO) 20-6
Project Match 12-3
Protrans 25-3
Public Guardian Office (Conservatorship) 10-4
Rehabilitation Research Center for Traumatic
Brain and Spinal Cord Injury 3-3, 11-4, 13-4,
18-4, 18-5, 19-5, 22-2, 22-5, 24-3, 24-4
Salvation Army - Social Services 12-4
San Jose Adult Education Center 9-2
San Jose Arena 16-20
San Jose Center for Performing Arts 16-18
San Jose City College 9-7, 16-2
San Jose Civic Auditorium 16-19
San Jose Museum of Art 16-15
San Jose State University 9-9
San Jose State University Occupational Therapy
Clinic 11-5
San Jose Veterans Center 5-3
Santa Clara County Asian Law Alliance 20-1
(Treatment Alternative Program - TAP) 1-6
Santa Clara County Committee For Employment
of the Disabled 26-6
Santa Clara County Mental Health 5-9
10-5
Santa Clara County Valley Transportation Agency
(VTA) 25-3
Santa Clara County Women’s Treatment Services
1-6
Santa Clara Library Literacy Alliance 9-2
9-11, 20-9, 22-6, 24-2
Santa Clara Valley Medical Center Adaptive
Driving Evaluation Program 7-2
Santa Clara Valley Medical Center Department of
Psychology 5-4, 24-3
Santa Clara Valley Medical Center Rehabilitation
Clinic 11-5
5-4, 6-8, 12-4, 13-3, 14-7, 16-7, 26-6
Social Advocates for Youth 1-6
City of San Jose, Office of Therapeutic Services
16-7
Spinal Cord Injury Support Group 24-3
Spinal Cord Injury Women’s Group 24-4
SSI Advocacy Program 10-6
Staff Builders Health Care 11-6
A-20
STEPS 1-6
Stride Program 1-7
The Tech Museum of Innovation 16-15
Timpany Recreation and Aquatics Center 16-3
United Way of Santa Clara County 19-1
Vet Center 26-7
Victim Witness Assistance Program 5-4, 10-6, 14-7
9-3, 20-1
VIVCO 2-8
Volunteer Exchange 26-8
We Care Personal Services 11-7
West Valley Japanese-American Senior Center
20-2
Women’s Clinic for Women with Disabilities 20-9
Women’s Community Clinic 20-9
6-7, 24-2
San Luis Obispo, CA
Adaptive Driving Systems 7-4
Cal Poly San Luis Obispo 9-8
Central Coast Assistive Technology Center 2-3
Cuesta College 9-5
Impact Publishers 3-4
6-7, 24-2
San Marcos, CA
Discovery Hills Travel 25-5
San Martin, CA
California Antique Aircraft Museum 16-13
10-5, 14-6
San Mateo County Battered Women’s Services 5-7
San Mateo, CA
College of San Mateo 9-5
Mills Hospital Pool 16-3
Mills Peninsula Hospital 11-3
Peninsula Family YMCA 16-4
10-5, 14-6
Volunteer Center of San Mateo County 26-8
San Pablo, CA
Contra Costa College 9-5
San Rafael, CA
Marin Center for Independent Living 13-3
Volunteer Center of Marin County 26-8
San Ramon, CA
Reproductive Science Center of the San Francisco
Bay Area 23-3
A. Index
Santa Barbara, CA
Independent Living Center 13-2
Santa Clara County Asian Law Alliance 20-1
(Treatment Alternative Program - TAP) 1-6
Santa Clara County Committee For Employment of
the Disabled 26-6
Santa Clara County Mental Health 5-9
5-3, 19-5
Santa Clara County Social Services Department 10-5
Central office 10-5
East Valley office 10-5
General Assistance 10-5
Mission City office 10-5
North County office 10-5
Senter Road office 10-5
South County office 10-5
Valley Medical Center 10-5
Santa Clara County Valley Transportation Agency
(VTA) 25-3
Santa Clara County Women’s Treatment Services 1-6
Santa Clara Library Literacy Alliance 9-2
Santa Clara University 9-9
9-11, 20-9, 22-6, 24-2
Santa Clara Valley Medical Center Adaptive Driving
Evaluation Program 7-2
Santa Clara Valley Medical Center Department of
Psychology 5-4, 24-3
Santa Clara Valley Medical Center Rehabilitation Clinic
11-5
Santa Clara, CA
American Indian Education Center 20-4
10-1
Home Health Plus 11-6
Mission College 9-7
Parents Helping Parents 15-2, 19-4, 20-6
Pathway Outpatient Program 1-6
Project Hired 26-6
Redwood Amphitheatre at Paramount’s Great
America, Santa Clara 16-18
10-5
Santa Clara University 9-9
South Bay Mobility 7-5
Triton Museum of Art 16-15
United Way First Call for Help 19-5
Santa Cruz Civic Auditorium 16-19
Santa Cruz County Women’s Crisis Support 5-7
Santa Cruz, CA
Robert Ludlow, Esq. 14-5
Mobility Training Program (Bus) 25-3
Santa Cruz Civic Auditorium 16-19
University of California, Santa Cruz 9-9
Visiting Nurse Association 11-7
Santa Maria, CA
Alan Hancock 9-4
Independent Living Resource Center 13-2
Santa Monica, CA
Center for Assisted Reproductive Medicine
UCLA Medical Center - Santa Monica 23-3
Santa Rosa Community College 9-7, 16-2
Santa Rosa YMCA 16-4
Santa Rosa, CA
Access Development Co. 7-3
California North Bay Fertility Association 23-1
Canine Companions for Independence 13-6
North Coast Rehabilitation Center 11-3
Redwood Caregiver Resource Center 13-5, 14-6
Santa Rosa Community College 9-7, 16-2
Santa Rosa YMCA 16-4
Spinal Cord Injury Network 9-11
3-6, 6-8, 18-2
Volunteer Center of Sonoma County 26-8
Saratoga, CA
Mountain Winery 16-18
Southwest YMCA 16-5
West Valley College 9-8, 16-2
Saturn Mobility 7-6
Schneider and McCormac Attorneys at Law 14-7
School of Medicine at Wright State University 1-7
SCI Connection 21-10
SCI Model Systems of Care
Craig Hospital 18-6
Kessler Institute for Rehabilitation, Inc. 18-6
18-5
The Shepherd Center 18-6
Spain Rehabilitation Center 18-5
The Institute for Rehabilitation and Research 18-7
A-21
A. Index
SCI Ring 21-2
Science and Humanities Press 3-3
Seaside, CA
CSU Monterey Bay 9-8
Seattle, WA
Sequoia YMCA 16-5
Service Dogs 13-6
Sexual Health Network 23-9
Sexuality and Spinal Cord Injury Bibliography Medical
College of Wisconsin Website 23-9
Sharp Rehabilitation Center 23-4
Shasta College 9-7
Shelter Against Violent Environment (SAVE) 5-7
Shepherd Center 3-4, 3-6, 18-6
Shepherd Hospital 21-4
Shield Healthcare 8-3
Shoreline Amphitheatre 16-19
Sibling Support Project 15-4
Sierra College 9-7
Silicon Valley Independent Living Center 3-2, 5-4, 6-8,
12-4, 13-3, 14-7, 16-7, 26-6
Silver Spring, MD
ABLEDATA 12-6
(NARIC) 6-5, 19-4
National Spinal Cord Injury Association 6-5
National Spinal Cord Injury Association 800HelpLine 19-3
Silver Spring, MD
ABLEDATA 2-10
22-4, 23-8, 24-3, 25-10
Silver Springs, MD
Abledata 2-1, 2-9
Silver Springs, MD
(NARIC) 18-3
Skyline College 9-7
Small Claims Advisory Santa Clara County 4-2
Social Advocates for Youth 1-6
Social Security and MediCare Information 10-5
Social Security Disability Advocates 10-5
Society for the Advancement of Travelers with
Handicaps 25-9
Solano Community College 9-8
Somerset, NJ
John Wiley and Sons 12-5
Somerville, MA
RESOLVE - The National Infertility Association
23-2
Sonoma State University 9-9
A-22
Sonora, CA
Columbia College 9-5
Living 13-2
South Bay Mobility 7-5
South Bay Wheelchair Athletic Program City of San
Jose, Office of Therapeutic Services 16-7
South Lake Tahoe, CA
Lake Tahoe College 9-6
Southwest Airlines 25-12
Southwest YMCA 16-5
Spain Rehabilitation Center 3-4, 3-5, 18-5
Special Home Needs 11-7
Spina Bifida Association of America 6-8
Spinal Cord Injury - For Your Information 22-5
9-9, 21-1, 22-5
Spinal Cord Injury Network 9-11
Spinal Cord Injury Network International 3-6, 6-8, 18-2
Spinal Cord Injury Support Group 24-3
Spinal Cord Injury Women’s Group 24-4
Spinal Cord Research Center University of Manitoba
17-3
Spinal Cord Society 6-9, 17-4, 21-9
SpineWire 17-6, 21-9
Springfield, IL
Charles C. Thomas Publishers 23-7
Springfield, NJ
6-2, 17-2, 22-3
Springfield, VA
American Canoe Association 16-12
SSI Advocacy Program 10-6
St. Ann’s, ON
Active Living
The Health, Fitness and Recreation Magazine for
People with a Disability 22-1
St. Louis, MO
Gazette International 22-2, 22-3
6-3, 20-7
Support Dogs, Inc. 13-6
St. Mary’s Hospital Rehabilitation Center 11-5
St. Paul, MN
Accessible Space, Inc. (ASI) 12-1
Staff Builders Health Care 11-6
Stamford, CT
International Wheelchair Road Racers Club, Inc.
16-11
Wheelchair Athletics of the USA 16-11
Stanford Home Care 11-6
Stanford University 9-9
A. Index
Stanford University Hospital Rehabilitation Center
11-5
Stanford University Medical Center 23-4
Stanford, CA
Stanford University 9-9
Stanford University Hospital Rehabilitation
Center 11-5
Stanford University Medical Center 23-4
STEPS 1-6
Stillwater, OK
National Clearing House of Rehabilitation
Training Materials 18-3
Stockholm, Sweden
Karolinska Institute 17-2
Stockton, CA
10-2
Living 13-2
San Joaquin Delta College 9-7
Stone Mountain, GA
Wheelchair Archery, USA 16-8
Storrs, CT
A. J. Pappanikou Center 3-3
Stride Program 1-7
East Valley Treatment and Recovery Center 1-7
North County Treatment and Recovery Center
1-7
West Valley Treatment and Recovery Center 1-7
Suicide and Crisis 5-4
Suisun, CA
Solano Community College 9-8
Sunnyvale, CA
Milpitas Housing Services 12-3
Sunnyvale, CA
California Rehabilitation Equipment 8-2
M & M Home Medical 8-2
Nova Bridge Program 26-5
Support Dogs, Inc. 13-6
Support Network for Battered Women 5-7, 20-8
Survivors Art Foundation 16-8
Susanville, CA
Lassen College 9-6
Syracuse, NY
Center on Human Policy 3-3
T
Takoma Park, MD
Mainstream, Inc. 22-2
Talk City 21-10
Tampa, FL
Organization for the Promotion of Access and
Travel for the Handicapped 25-7
Tapes
Busting Loose to Independence: Through
Personal Attendant Services 3-6
Tarzana, CA
Travel Industry and Disability Exchange (TIDE)
25-7
The Taunton Press 12-5
The Tech Museum of Innovation 16-15
Technical Aid Facilitation (TAF) Tetra Society of North
America 2-7
3-7, 9-10, 9-11, 18-7, 19-1, 22-6
Theatre on the Square 16-19
Therapy in Your Home 11-5
3-Com Park 16-20
Through the Looking Glass 15-3
Thumbs Up - The Mike Utley Foundation 17-4
Timpany Recreation and Aquatics Center 16-3
Trace Research and Development Center 2-7, 2-10
Trauma/Injury Support Group 24-4
Travel Industry and Disability Exchange (TIDE) 25-7
Travel Turtle Tours 25-6
TRIPS Inc. 25-6
Triton Museum of Art 16-15
Turlock, CA
Medic Alert Foundation 4-1
TWA Airlines 25-12
U
U.S. Cerebral Palsy Athletic Association 16-9
U.S. Department of Justice 14-7
U.S. Disabled Ski Team 16-11
U.S. Rowing Association 16-12
U.S. Veterans Administration 10-6, 20-11
U.S. Wheelchair Swimming 16-12
U.S. Wheelchair Weightlifting Federation 16-12
UCLA School of Medicine 23-3
UCP of the Golden Gate 20-9
UCSF Mount Zion Urology Faculty Practice Male
Fertility Clinic 23-4
Ukiah, CA
Mendocino College 9-6
United Airlines 25-12
United Cerebral Palsy 2-8
United Way First Call for Help 19-5
United Way of Santa Clara County 19-1
University of Alabama at Birmingham 6-6, 9-9
A-23
A. Index
University of Alabama at Birmingham Spinal Cord
Injury Information Network 3-2
University of British Columbia, School of Nursing
Consultation Resource Service for Women with
Disabilities 15-3
University of California Davis Medical Center 11-6
University of California, Berkeley 9-9
University of California, San Francisco 9-9
University of California, Santa Cruz 9-9
University of Minnesota Disability Service Careers
Online 21-6, 26-9
University of Missouri, Columbia 18-6
University of Washington 18-7, 21-3
Urological Physicians of San Diego 23-4
US Food and Drug Administration 21-8
USAir 25-12
Utah Assistive Technology Program 3-4
V
VA Healthcare Systems, San Diego 23-4
Vallejo, CA
Western Rehab Systems 8-3
Valley Health Network 11-7
Vancouver, British Columbia
Technical Aid Facilitation (TAF)
Tetra Society of North America 2-7
University of British Columbia, School of Nursing:
Consultation Resource Service for Women
with Disabilities 15-3
Vet Center 26-7
Veterans Administration Medical Center Palo Alto 7-3
Vets Next Step Center 20-11
Victim Witness Assistance Program 5-4, 10-6, 14-7
Victims of Crime Resource Center 5-4, 10-6, 14-8
Victor, ID
Access Tours 25-3
Videos
The Return to Yourself 9-11, 22-7
The Consumer: Issues and Answers 3-6
Alcohol & Medications & You 1-8
Attendant Care Basics: An Orientation 3-6
Building and Remodeling for Accessibility 12-6
The Community: A Vision 3-6
Disclosing Abilities 26-10
Enable - People with Disabilities and Computers
26-10
Everyone Can Work Video 26-10
A-24
From Nowhere to Somewhere: Street Drugs and
Your Rehabilitation 1-8
Partners in Independence: The PCA’s Role in
Pressure Sore Prevention 3-6
Personal Assistance Services Video Series 3-6
Personal Assistant Recruitment 3-6
The Provider: On Being a Personal Assistant 3-6
The Road to Independence: Adapted Driving
Options 7-7
Sexuality Reborn 23-9
Take Control: A Multimedia Guide to SCI for
Consumers, Family and Staff Education
9-11, 22-7
Vietnamese Voluntary Foundation (VIVO) 9-3, 20-1
Virtual Paraplegia 21-1
Visalia, CA
College of the Sequoias 9-5
Visiting Nurse Association 11-7
Vista College 9-8
VIVCO 2-8
Vocational Program - Goodwill Industries of
Sacramento 26-7
Volkswagon Mobility Access Program 7-6
Volunteer Center of Contra Costa County 26-7
Volunteer Center of Marin County 26-8
Volunteer Center of Napa County 26-8
Volunteer Center of Sacramento and Yolo Counties
26-8
Volunteer Center of San Francisco 26-8
Volunteer Center of San Mateo County 26-8
Volunteer Center of Sonoma County 26-8
Volunteer Exchange 26-8
Volunteerism Project 26-9
W
Waitsfield, VT
Accessible Adventures 25-4
Waldorf, MD
Paralyzed Veterans of America - Publications
Center 1-8
Walnut Creek, CA
John Muir Rehabilitation Center 11-2
John Muir Therapy 7-2
Volunteer Center of Contra Costa County 26-7
Warfield, The 16-19
Washington, DC
Accessible Traveler’s Database 25-11
Disability Rights Education of Defense Fund
(DREDF) 14-4
Federal Rehabilitation Services Administration
22-2
Heath Resource Center 6-3, 9-1
A. Index
Internal Revenue Service 10-3
Library of Congress 2-9
National Information Center for Children and
Youth with Disabilities (NICHCY) 15-2, 20-5
National Institute on Disability and Rehabilitation
Research (NIDRR) 6-4, 18-5
National Organization on Disability (NOD) 6-4
Office of Amtrak Access 25-8
Office of Minority Health Resource Center 19-4,
20-3
Office on ADA 10-4
Paralyzed Veterans of America 3-8, 6-7, 9-10, 18-4,
22-6
Paralyzed Veterans of America SCI Education and
Training Foundation 17-3
President’s Committee on Employment of People
with Disabilities 6-7, 26-5
Project Action 25-11
Rehabilitation International 18-4
Request Rehabilitation Engineering Center 2-7
Spina Bifida Association of America 6-8
Watsonville, CA
Fenix Services Institute 1-4
We Care Personal Services 11-7
WebMD 21-7
Weed, CA
College of the Siskiyous 9-5
Well Spouse Foundation 15-3
West Lafayette, IN
Barn Builders - Peer Support for Farmers with
Disabilities 24-1
West Orange, NJ
Kessler Institute for Rehabilitation 3-7, 9-10, 18-6,
23-9
West Valley College 9-8, 16-2
West Valley Japanese-American Senior Center 20-2
Western Rehab Systems 8-3
Westhampton, NY
Survivors Art Foundation 16-8
Westminster, MD
Fodor Travel Publications 25-9
Wheaton, IL
Marionjoy Rehabilitation Hospital 3-6
Wheelchair Accessible Home Clearinghouse 12-4
Wheelchair Archery, USA 16-8
Wheelchair Athletics of the USA 16-11
Wheelchair Getaways 25-12
Wheelchair Sports, USA 16-10
Wheelers East, Inc. 25-12
Wheelweb.com 21-9
Wilderness Inquiry 25-7
Winnipeg, Manitoba
Spinal Cord Research Center
University of Manitoba 17-3
Wired on Wheels 21-10
Women and Their Children’s Housing (W.A.T.C.H.) 5-8
Women with Disabilities Resource Center 19-5, 20-9
Women with Disabilities Support Group 24-4
Women’s Clinic for Women with Disabilities 20-9
Women’s Community Clinic 20-9
Woodland, CA
World Institute on Disability (WID) 6-9, 19-5
Worlds of Travel 25-7
Worldwide Disability Solution Group Apple Computer
Inc. 2-8
Written Resources
Assistive Devices for Use with Personal
Computers 2-9
Assistive Technology for People with Spinal Cord
Injury 2-9
Informed Consumer Guide to Information on
Funding Assistive Technology 2-10
Y
Yreka, CA
Yuba City, CA
Yuba College 9-8
A-25

A Guide to Northern California Resources for Individuals with Spinal

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