Fall 2013 - Volume 15 - Number 3 - Alzheimer`s Family Organization

Companion
Fall 2013
Vol. 15, No. 3
Keeping
You Up
To Date
I
N
S
I
D
E
Executive Director’s Report Lake-Sumter-Marion Report
Page 2
Page 10
Hernando and Citrus Report
From the President
Alzheimer’s International
Conference
Adult Day Care Centers
Fashion Show
Tribute To Judy
The Lily Golf Tournament
Brain Donation
You Can Help
USF Byrd Institute
Upcoming Events
Meet The Board
Education Calendar
Expert Training
Page 3
Page 4
Page 5
Page 6
Page 8
Pasco County Report
Page 11
Page 12
Page 13
Page 14
Golf Tournament
Poker Run
Simply Delicious
Reflections
Volunteer Spotlight
Page 21
Page 16
Page 17
Transportation Issues
Page 19
Page 20
Support Groups
Services
Page 22
Donations, Memberships
and Memorials
Page 23
Membership Form
Page 24
Page 15
Page 9
NON - PROFIT COMMUNITY BENEFIT ORGANIZATION SERVING CENTRAL FLORIDA
Covering Citrus, Hernando, Northern Hillsborough, Northern Pinellas, Lake, Pasco, southern marion and Sumter Counties
Executive Director’s Report
Alzheimer’s
Family Organization
FAMILY IS OUR MIDDLE NAME
Executive Director
Dominick De Petrillo
President
Tracey Ramsey, A.S.
Vice President
Kathy Haviland
Treasurer
John Jamison
Secretary
Glenn Jacobs, M.B.A.
Members
Ron Beach
Jenny Bellows
Cheryl Courtright
Deborah O’Leary, R.N.,
B.C.G.
Bonnie Reidy
Sue Simone
____________________
Advisory Committee
Mildred V. Farmer, M.D.
Pastor Bill Lee
Reverend Jack Long
Jim Mathieu, Esq.
Eileen Poiley, M.S.
Sean Scott, Esq.
Your County
Representatives
Hernando/Citrus
John Winans
352-232-0081
Dominick De Petrillo, Executive Director
Are we waiting for a cool breeze? I and instruct caregivers and
know I am, but we don’t want a hurricane even those who have been
to bring it. We moved to Florida in 1977, recently diagnosed. Theirs
and it seems like it has been getting hotter is a very hard job, but we
and hotter every year. But, if the weather is are pleased that so many
all we have to complain about, I guess we have come forward to take
have it pretty good!
up the challenge.
Much has been happening with your
We held our first Caregiver Day in Clerorganization these past three months. We mont, Lake County, and those in attendance
now have some new members on our Board seemed pleased that we had finally offered
of Directors who have stepped forward to this educational program in their area.
ensure that we are living up to our Mission
We have a new clerical worker at the
and Vision Statements. Our organization main office. He is John Brinker and is the
was founded on the premise that aid to the melodious voice you may hear when you
caregiver of a dementia patient would be call. The next time he answers your call,
our primary goal. Through the years we please welcome him as the staff members
have worked to ensure that idea would be have done.
continued and have offered a number of
Please remember to join us for our
services and programs that may make their annual Golf Tournament. You will find
lives a little easier. Following are some of information about this and other fundraisers
the ways:
elsewhere in this newsletter. Since we are
For those of you who were able to at- a non-profit 501-C-3 organization who does
tend the Teepa Snow Presentation in April, not get any government funding, all of our
you saw first-hand the suggestions she of- funds come from donations and sponsorships
fered to assist the caregiver in their task of in our service area. If you can help, please
being responsible for the wellbeing of the extend a hand.
dementia patient.
I wish you all a wonderful fall season!
Our Respite Care Program offers a short
time away from the task to help the caregiver
Newsletter Committee
get re-energized.
The Wanderer’s Identification Program
Editor: Sue Simone
Editorial Staff:
may give a little peace of mind if the patient
Steve Davis, Beth Garafallou,
elopes from their environment.
Suzanne Lawlor
One of the most important programs are All material in this newsletter
is offered as information to our readers.
the many Support Groups that are located The Alzheimer’s Family Organization does not warrant, endorse, or
recommend any provider, program, or product.
around our service area. The dedicated
Others interested in supporting this publication
facilitators work very hard to education
may call the Organization office at 888-496-8004
or 727-848-8888.
Alzheimer’s Family Organization
Lake/Sumter/Marion
Carol McCarthy
352-454-8303
Hours: 8:30 a.m. to 4:30 p.m., Mon. – Fri.
Mail: P.O. Box 1939
New Port Richey, FL 34656-1939
Telephone: 727-848-8888
Toll-Free: 888-496-8004
Fax: 727-849-7707
E-Mail: [email protected]
Web Site: www.alzheimersfamily.org
Pasco
Melinda Velez
813-215-9394
Facebook: www.facebook.com/AFO.FL
Main Office:6616 Rowan Road
New Port Richey, FL 34653
Hernando County Branch Office:
Brooksville Regional Hospital
Medical Arts Bldg. – Ste. 120
17222 Hospital Blvd., Brooksville, FL 34601
Every Monday - 1:00 PM – 4:00 PM
The “Companion” is published quarterly by The Alzheimer’s Family Organization; mailing address PO Box 1939, New Port Richey, FL 34656-1939; located at 6616
Rowan Road, New Port Richey, FL 34653. Subscription is free to members and advertisers. The Alzheimer’s Family Organization disclaims any liability for damages
resulting from articles, opinions, advertising, or representations expressed or implied in this publication. Any comments or claims are made solely by the individual
author and do not necessarily represent the views of any other Alzheimer’s Family Organization member or other persons, living or dead.
2 / Companion - Fall 2013
A United Way
Agency
Hernando and Citrus
Counties Report
By John Winans
Citrus-Hernando Community Educator
The most wonderful time of the year...fall is right
around the corner. As we enjoy the final days of summer, and the cool evening breezes bring forth memories
of autumn days past, let us take time out of our busy
schedules, collecting memories, to share with future
generations. It may be a photo of you and your loved
ones together at the Labor Day BBQ. It might be a
seashell from that trip with your spouse to the beach.
It may be the new friend you made at a local AFO support group, or the day spent with our family at one of
the fundraising events. This brings to mind the Teepa
Snow workshop, where we laughed, cried, even sang,
but most importantly, we learned and shared. How about
the Stress Busters day, where our caregivers enjoyed
a day of free massages, manicures, even mini facials,
and once again, education? Folks are still talking about
both of these events. Also, sharing informational materials at several health fairs and community events over
the past few months and the donation presentations,
especially at Timber Pines, will constantly remind me
of how desperate our community is for answers and
the AFO.
We are all looking forward to next year’s schedule
of events, but this year is far from being over. As fall
revs up, so will the engines during our inaugural Miles
of Memories Tour and Poker Run. Be sure to join Hernando and Citrus Counties October 5th on a quest to
win. Either on motorcycle or in the car, participants will
be touring the Nature Coast. Whether building a poker
hand for a chance at five hundred dollars cash, or just
enjoying our beautiful landscape, meeting new friends,
or helping old ones, everyone will feel like a winner.
This fundraiser is being developed by a seasoned committee of dedicated volunteers. You will have a chance
to meet Dean, Gordon, Denis, Rebecca and myself that
day or sooner, as we seek sponsors and items for raffle
throughout the community. Also consider your donation
to further our AFO programs and services.
Remember those memories we are building? Well,
another chance will come, on Saturday October 5th. I
will see you there. Until next time, please visit one of
our many support groups; there are new ones, all listed
here in this issue. Also, plan on volunteering with our
staff—there are many different ways to be involved.
Thanks for the memories and enjoy your Companion.
A United Way
Agency
From the Desk of the
President
Dear Caregivers, Families, and
Friends:
I would like to introduce myself
to all of you. My name is Tracey
Ramsey, and I am the new President
of the Alzheimer’s Family Organization (AFO) Board
of Directors. I have volunteered with the AFO since
its inception 15 years ago. I also currently chair the
Education Committee of the Organization.
Through the AFO, I have seen many caregivers
benefit from the programs, services, and educational opportunities provided by the Organization. It is the hope
of all of us that this will continue, and we will provide
what our caregivers need to meet the daily challenges
that occur when dealing with Alzheimer’s disease.
I invite all those interested to come and support
the events in your community that you will find in this
newsletter. Your interest and support of our events helps
us continue to provide our services to the caregivers
and families in the counties we serve.
Sincerely,
Tracey Ramsey
Vision Statement
All those with Alzheimer’s
or other forms of dementia, and their
caregivers, will have a better quality of life.
facebook.com/AFO.FL
Scan this QR code with your smartphone. It will
take you to www.alzheimersfamily.org. Download
a free QR code reader from the ITunes App Store
or Android Market to read the QR code.
Mission Statement
To provide educational programs, support
services and assistance to caregivers, families and
individuals with Alzheimer’s
disease and other
dementia.
The Alzheimer’s Family Organization conforms to the Florida “Solicitations of
Contributions Act” pertaining to charitable organizations: “A COPY OF THE
OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE
OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING
TOLL-FREE WITHIN THE STATE (1-800-HELP FLA) REGISTRATION DOES
NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY
THE STATE.”
Companion - Fall 2013 / 3
Adult Day Care Centers
Are Excellent Resources For Caregivers
By Beth Garofallou, Editorial Staff
Caregivers and family members caring for a loved one with
Alzheimer’s or other dementia
often need help so that they can
take care of their own needs. Adult
day care centers were designed
for that purpose: To provide a safe
place where seniors can receive
care and companionship during the
day. These programs offer relief to
caregivers so they can go to work
or appointments, handle business,
or just relax for the day—without
having to institutionalize their loved
one. Well managed adult day care
centers also encourage socialization
and build self esteem.
There are two types of adult day
care: adult social day care and adult
day health care. Adult social day care
provides social activities, meals,
recreation and some health-related
services. Adult day health care offers
more intensive health, therapeutic
and social services for individuals
with severe medical problems and
those at risk of
requiring nursing home care.
Some day care
centers are
stand-alone, but
some are located
in senior centers,
nursing facilities, churches, or
other facilities.
Some provide
transportation
to and from the
center.
As with any service, it is important to learn about a center before
sending your loved one. Contact
them and request a tour, talk with
the staff and other families that use
them, and make sure the center offers
the services that fit your needs.
Costs vary depending on the
services offered and type of reimbursement. While an adult day
care center is not usually covered
by insurance or Medicare, some
financial assistance may be available
through a federal or state program.
Be sure to contact the Alzheimer’s
Family Organization to discuss more
options.
Please call or email the AFO
office for a complete resource list
of your county.
THE LONG WAY HOME!
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by Marian
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by Marian Ritchie, Author & Speaker
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ntertaining,
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ELPING
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email:
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4 / Companion - Fall 2013
A United Way
Agency
By
Do you remember the song,
“The Wind Beneath My Wings?”
This song is always foremost in
my mind when I think of my wife,
Judy. Although I have not attained
a high altitude in life, most of my
accomplishments have been aided
by her dedication, hard work and
assistance.
I have been involved with
Alzheimer’s disease and related
dementia for the past 25 years
and know the toll it takes on the
caregivers. Throughout this time
people identify me as the leader
of an organization that is geared to
assist the caregivers with their task
of caring for their loved one. What
is often not recognized is that the
Alzheimer’s Family Organization
exists because of the efforts of many
volunteers who have either personally lived through the disease of
caring for their loved ones or have
family members who are presently
living with the disease.
The title of this article is an
introduction of Judy, who has been
I salute…the many thousands
of caregivers who give of
themselves every day to
ensure the Alzheimer’s
patient can be as safe and
as comfortable as possible.
Tribute To Judy
Dominick DePetrillo, Executive Director
selves and the commuby my side the whole
nity. She maintained
time. She allowed my
a job but would take
mother to move in with
time off to ensure that
us when my father
what I needed to do
passed away. She tried
was completed. We
her best to care for her
worked many weekthrough all the trials
ends and holidays,
and tribulations that
held garage sales in the
Alzheimer’s disease
middle of summer, had
can project. It goes
many other outdoor
without saying that
every day was not a “rose garden,” events that were washed away by
but she struggled through with the hurricanes and tropical storms. She
help of my two daughters, Nicole never complained about what we
had to do tomorrow because she
and Stacey.
There was not much information realized that, now that my mother
available about Alzheimer’s disease had passed, we needed to add our
or other forms of dementia in the story to others who had survived as
1980s, but after a diagnosis of, caregivers.
At the June Fashion Show, Judy
“Organic Brain Disorder,” we knew
we had to learn more. Although was awarded a plaque from the AFO
this was not a great diagnosis, it Board of Directors for her dedication
was typical of the time. We joined and assistance for over 25 years of
a support group and tried to un- service. She has always shied away
derstand the many challenges that from notoriety and was very embarwere ahead of us. Some wonder- rassed by this show of appreciation,
ful people shared their stories with but I was happy that she received
us and guided us through many her just rewards.
She, like so many other careof the situations that arose. After
my mother’s death at 82, we had givers, have enriched the next gena brain autopsy performed on her, eration with their knowledge and I
and the tell-tale signs of Alzheimer’s salute not only Judy, but the many
disease (Amyloid Plaques and Neu- thousands of caregivers who give of
rofibrillary Tangles) were detected, themselves every day to ensure the
Alzheimer’s patient can be as safe
confirming our suspicions.
Throughout this time, Judy was and as comfortable as possible.
Thank you Judy and all
by my side with any endeavor that
was suggested as a way to help our- caregivers!
Memory with Extended Congregate Care
Call Bonnie For A Tour
Office: 352.259.8185 Cell: 352.250.7130
A United Way
Agency
Companion - Fall 2013 / 5
Your Gift To The Future:
Brain Donation And The Florida Brain Bank
By Sue Simone, Editor
A brain autopsy provides a
definitive diagnosis of Alzheimer’s
disease. There are other diseases
that attack the brain, but there is
no safe way to test the living brain.
Only a brain donation will help find
treatments and the cure.
There are several reasons why
some families are compelled to
autopsy and/or donate their loved
one’s brain. Often knowing the
exact name of the disease allows
for closure. Some people want
to know the precise nature of the
disease because it becomes part of
the family’s medical history and
will be important to children and
grandchildren as new treatments
become available. And many people
find meaning in knowing their loved
one’s gift is to a future with treatments and a cure.
Be clear about the important
differences between a brain autopsy
and a brain donation. A brain autopsy is the removal and analysis
of the brain for the purposes of
establishing a definitive diagnosis. It
does not allow for study or research
purposes. A diagnostic autopsy can
be performed by a variety of pathology labs or private practitioners; criteria for enrollment and procedures
are not defined by study protocols,
and the family will receive a written
report of the findings. In this case
the family will bear the cost.
A brain donation allows researchers broader use of tissue
for specific study programs. Each
center will have its own enrollment
criteria and specific protocols to
follow. When enrolling to donate
a brain, you should confirm you
will receive a definitive diagnosis.
Most centers seeking brain donations require pre-enrollment to make
sure the patient meets their research
6 / Companion - Fall 2013
criteria. If a patient qualifies there
is usually no cost.
A brain bank is a central repository where postmortem donated
brain tissue for research is collected,
stored, studied and distributed.
Neurologists believe that linking
pathology and pairing autopsy data
with clinical evidence is key to providing specific tissue for particular
investigations
The Florida Brain Bank studies
the brains of individuals with progressive dementias, provides families with a definitive diagnosis and
acquires brain tissue for research.
There are five participating centers
in Florida, and pre-registration is
required. Their team understands
that choosing to participate may be
difficult. They are there to help,
answer your questions and guide
you.
Brain tissue banks are not just
for people with diseases. If scientists had more healthy brain tissue
to study, there would be better
baseline, comparative and control
measures and they would be able to
match age and gender data in both
diseased and healthy brains. The
National Institute of Mental Health
(NIMH) contracts with brain banks
so tissue can be shared broadly and
systematically. Federal regulators
have already met with mental health
advocacy organizations to talk about
the benefits of brain donations for
far reaching research in many different areas of mental health, and
soon there will be a NIMH website
to educate the general public.
Florida Brain Bank:
http://elderaffairs.state.fl/us/
doea/BrainBank/index.php
Central Florida:
Alachua, Duval, Brevard, Hernando,
Hillsborough, Indian River, Leon,
Marion, Lake, Okeechobee, Orange,
Osceola, Pasco, Pinellas, Polk,
Seminole, St. Lucie, Sumter, and
Volusia counties.
Contact Martha Purdy, LCSW
Brain Bank Coordinator
Alzheimer Resource Center
1506 Lake Highland Drive
Orlando, Florida 32803
407-843-1910 Ext. 308
Tampa:
Hillsborough and Pinellas counties.
Contact Nancy Teten, LCSW, CAP,
Brain Coordinator 4001
East Fletcher Avenue
Tampa, Florida 33613
813-866-1600
You Can
Help
Volunteering Helps Keep
You Young and Vital.
Committee Members
2014 Pasco Challenge
Education/Community Service
Media/Newsletter/Finance
Events
2013 Golf Tournament
Miles of Memories Tour and
Poker Run 2013
Office Work
Bulk Mailings – Fold, tape and label
Data Entry
Labeling Brochures
Phone Calls
Other
Health Fair Assistants
Educational Trainers
Educational Speakers
We Need You!
A United Way
Agency
A United Way
Agency
Companion - Fall 2013 / 7
Meet The Board – A Series : Glenn Jacobs
Glenn was born in the Panama
Canal Zone, with his father having
been an Army dentist. He was raised
in Auburn, Massachusetts. Spending
summers in West Chatham on Cape
Cod, he attended Stetson University in Deland, Florida, to pursue a
Bachelor’s degree in biology. While
coaching women’s intramural sports
(earning the title, “Coach of the
Year”), Glenn met his future wife,
Leslie, shortly before completing
his MBA.
Leslie and Glenn just celebrated
their 35th wedding anniversary in
May, and they are blessed with two
married daughters, Tara and Amy.
Tara is married to Bobby, with two
boys, Tyler and Tanner, and a girl
due in December. Amy recently married Brian, and they live in Toronto,
Canada. All three girls are teachers,
making Glenn very proud!
Glenn moved to New Port
Richey upon completing his MBA,
By Steve Davis, M.S., Editorial Staff
working at the West Campus of PHCC, his focus
being on academic advisement, special programs,
and classroom instruction
in Economics.
The early 80’s provided
Glenn with an introduction
to a healthcare career which
began in a training position for
business office managers with Community Hospital, New Port Richey,
and evolved into senior leadership
in Hospital Administration, Risk
Management, Ethics and Compliance, Emergency Management,
Service Excellence, and currently,
Business Development.
Glenn enjoys family outdoor
activities, running, cycling, and
swimming. He has completed 8
marathons, 28 half-marathons, 7
triathlons, and one 70.3 Ironman
Triathlon.
He is a member of the Rotary
Club of Seven Springs, is
on the Board and is the
Run Coordinator for the
Longleaf Triathlon. Additionally, Glenn has been on
the Board of the Deaf and
Hard of Hearing Services
of Florida, Inc., for more
than 10 years.
Glenn and Dominick share a
special friendship that has been
cultivated from a mutual love for
racquetball and commitment to the
AFO. “It was Dom’s love and commitment to family in the care of his
mother that touched my heart. As
we each recall from the early years,
my family supported the AFO at the
Pasco Challenge, loading our girls
in a red wagon to join the event.
And I am pleased to be part of this
compassionate organization.”
Thank you, Glenn, for your
loyal, compassionate involvement
and support of AFO!
Everyone is entitled to good end-of-life care. At Gulfside
Regional Hospice, we are there when our patients need
us the most – providing comfort care for those living with a
life-limiting illness, their loved ones and those who have lost
someone special in their lives. We care for people with any
serious illness including heart disease, lung disease, cancer
and Alzheimer’s disease. At Gulfside, it’s not about dying
– it’s about making every day count.
We are here to help. Call any time.
727-845-5707 • 800-561-4883 • www.GRHospice.org
8 / Companion - Fall 2013
A United Way
Agency
Pasco County Report
By Melinda Velez, Pasco County Educator
Special thanks to businesses in
Pasco, Hillsborough and Pinellas
County for supporting our 2013
fundraising events such as the recent
Fashion Show. Thank you to supporting businesses from the Women
in Network – WIN groups in Land
O’ Lakes, Palm Harbor and Tarpon
Springs, Senior Focus Network, The
Central Pasco chamber, Pasco Aging
Network, Women Helping Women
and Positive Trinity Business. A
sincere thank you to the members of
these groups that connected with our
mission. We also have new sponsorship opportunities with our 13th Annual Golf Tournament on November
9th. See special events page on
www.alzheimersfamily.org
Good news Central Pasco residents! Two new Caregiver support
groups have launched: Home Instead Wesley Chapel meets on the
2nd Tuesday of the month at 10:00
am. For location information on
the Wesley Chapel group, please
contact Michele Bonneville at 813991-7524. A second caregiver group
has started at Connerton Courts
ALF in Land O’ Lakes. For time
and day for this Land O’ Lakes
location, please call Aaron Stover
at 813-996-9919.
In August, we partnered with
the Florida Hospital Zephyrhills
(FHZ) for our first East Pasco Stress
Buster event at the hospital’s wellness conference room center. This
event was free and offered wellness
resources and pampering created
specifically for local caregivers of
the community who are caring for
loved ones with the devastating effects of Alzheimer’s disease or other
dementia. Speakers featured: Dr.
Mildred Farmer, MD from Meridien
Research, who addressed the group
on the latest updates on Alzheimer’s
disease; Heather Ray, Gulfside Regional Hospice, who spoke on stress
reduction; and Myriam Parham, RD,
CDE, who presented on nutrition,
weight and diabetes. Spa treatments
were available to caregivers with
manicures, back chair massages and
facials. Thank you to Florida Hospital Zephyrhills for venue location
and new friends Simply Solutions
Salon in Zephyrhills and Garden of
Eden Spa in Dade City for donating
their services.
The Alzheimer’s Family Organization (AFO) will host a free
afternoon dessert for local East
Laugh
L ines
Pasco residents
at the Humana
Guidance Center
in Zephyrhills on
Monday, September 9th at 1:00 PM.
AFO programs and services will be
shared. No need to be a Humana
member. For details, contact Cyndi
Gyngard from Humana office at
813-780-7300.
On September 19th from 12
Noon and 1:00pm, The Alzheimer’s
Family Organization joins the
Gulfside Regional Hospice at The
Summit New Port Richey ALF for
a Community luncheon. Caregivers and families are welcome to
attend for a time of refreshment
and awareness of local services and
resources.
Later this fall, The Alzheimer’s
Family Organization will host a Pasco Community Partnership “Lunch
and learn” event to welcome and
inform local businesses about AFO’s
community outreach and mission.
Special invite only for this luncheon. November is Alzheimer’s
Awareness Month and November
19th is National Memory Screening
Day – more details on this event to
follow.
For information on our
Pasco AFO community events and
memory screening, please contact
[email protected] or
our office at 727-848-8488.
Two old men were sitting in the yard outside the
care home one day when Tim turned to the other and
said, “John, I’m really feeling my age today. I just hurt
all over. How are you feeling?”
John replied “I feel just like a new born babe.”
Tim looked at him, startled. “A new born babe…
really?”
“Yep, I have no hair, no teeth, and I think I just
wet my pants.”
A United Way
Agency
Companion - Fall 2013 / 9
Lake-Sumter-Marion Counties Report
By Carol McCarthy, Lake-Sumter Community Educator
Our last “Information and
Training” Caregiver Day was on
May 20th, 2013 at the First United
Methodist Church Wesley Center in
Clermont. It was the first time the
AFO had held a caregiver day in
Clermont. The morning started with
a continental breakfast and meet and
mingle with our caregivers, staff and
presenters. Dominick De Petrillo,
AFO Executive Director, formally
welcomed our guests and oriented
them to the speaker and educational
topics for the day.
The first presenter was Deputy
Walter Wolf of the Lake County
Sheriff’s department. He spoke
about senior safety, including information on the Baker Act and tips on
presenting senior scams.
Next, Terry “T” Elwood of
Keiber Law of Clermont, spoke
about the up-to-date laws around
estate planning and smart estate
10 / Companion - Fall 2013
strategies for caregivers and their
loved ones.
“Live the Moment…Love the
Moment” was presented by Jill
Andrews from the Superior Residences of Brandon. Jill provided
bits of upbeat and helpful advice to
lead caregivers into a more positive
piece-of-mind in sometimes-difficult
situations.
The last presenter, Jan Russell
from Cornerstone Hospice, interjected comedy into her presentation,
“Laughter is the Best Medicine.”
She and the audience “yucked” it
up with some funny photos and
anecdotes, emphasizing that laughter
can be a saving grace in challenging
situations.
Our sponsors for the event were:
Keiber Retirement, Phoenix Home
Care, Superior Residences of Clermont, Visiting Angels Home Care
and Cornerstone Hospice of Lake
and Sumter Counties.
I want to thank
the following people
who were on the
planning committee with me for a
job well done: Pam Schmitz, Deborah Snow, Lindsay Finkbeiner and
Christen Wilson.
Our hope is to continue these
caregiver days on a regular basis
for South Lake County Caregivers,
since the first one was so well attended and received.
On July 22nd at the Venetian
Gardens in Leesburg, we held our
annual Support Group Leader Appreciation Luncheon. Regularly, we
pause to recognize our caregiver
support group leaders to say thanks
for all they do. Twenty-five leaders
were in attendance for lunch, good
conversation and a presentation of
certificates.
A United Way
Agency
Greetings from Boston and the Alzheimer’s
International Conference 2013!
By Mildred Farmer, MD, Meridien Research
The science of Alzheimer’s
disease is evolving and scientists
are finding that the disease is more
varied in regards to biology and
clinical outcomes than originally
suspected. Even the criteria for
the diagnosis are changing and unfortunately, the interface between
research and the family doctor is
lagging on all fronts, particularly
considering that the new diagnostic
tests are not yet covered by Medicare. Medicare takes the stance
that diagnostic treatments for Alzheimer’s disease will be covered
once there is a clear health outcomes
benefit to an early and accurate
diagnosis. While the government
is considering paying for imaging
studies for large research protocols,
in the clinic we still do not change
the way we treat a patient with dementia based on results of genetic
testing, cerebral spinal fluid testing,
or imaging studies. Therefore, these
procedures and tests are not covered
by Medicare at this time. Pharmaceutical companies have
brought over twenty compounds to
the point of large scale testing in
patients with Alzheimer’s disease
in the recent past. None of these
potential therapies have been found
to be effective. When scientists look
more closely at the patients in research trials they find that 20% or
more might not have the diagnosis
of Alzheimer’s disease once more
rigorous diagnostic criteria are applied. Can we expect targeted amyloid therapies
to work if we
find the patient
we are studying
does not have
a pathological amount of
amyloid in the
brain? In order
to understand
Alzheimer’s Caregiver Support Group
Alzheimer’s
Alzheimer’s Caregiver
Caregiver Support
Support Group
Group
If you are caring for a loved one with Alzheimer’s disease or
If you are caring
for appreciate
a loved one with
Alzheimer’s
or
dementia,
you may
safe retreat
wheredisease
you can
If you are caring
for a loved onea with
Alzheimer’s
disease
or
dementia,
you
may
appreciate
a
safe
retreat
where
you
can
unwind
and
share
feelings
with
other
caregivers
in
a
relaxed
dementia, you may appreciate a safe retreat where you can and
unwind
and share feelings
with
otherwhether
caregivers
in loved
a relaxed
confidential
It doesn’t
matter
your
oneand
is
unwind and setting.
share feelings
with
other caregivers
in a relaxed
and
confidential
setting.
Itall
doesn’t
matterare
whether
your
loved
one
is
under
hospice
care
–
caregivers
welcome
and
the
support
confidential setting. It doesn’t matter whether your loved one is
under hospice
carethe
– allgroup
caregivers
are
welcomebyand
the
support
group
is
free.
Plus,
will
be
facilitated
an
HPH
under hospice care – all caregivers are welcome and the support
group issocial
free. Plus,
the(MSW)
group will
facilitated
by an and
HPH
clinical
worker
whobe
you’ll
get to know
group is free. Plus,
the group will
be
facilitated
by an HPHtrust.
clinical social worker (MSW) who you’ll get to know and trust.
clinical social worker (MSW) who you’ll get to know and trust.
Third Tuesday of Every Month
Third
Tuesday
Everyp.m.
Month
2:00
p.m. –of3:30
Third Tuesday of Every Month
2:00 p.m. – 3:30 p.m.
2:00 p.m. – 3:30 p.m.
HPH Hospice Office
HPH
Hospice
6807
RowanOffice
Rd.
HPH Hospice Office
6807 Port
Rowan
Rd.
New
Richey
6807 Rowan Rd.
New Port Richey
New Port Richey
For more information:
For
information:
848-7160
For more
more
information:
the disease process better, we need
tools to distinguish the different
conditions that we currently lump
under the diagnosis Alzheimer’s.
What this means for patients and
families is that dementia syndromes
must continue to be studied not just
for treatment, but to understand the
nature of the disease. Until there
are targeted therapies for certain
types of Alzheimer’s, more sophisticated testing will not be covered
by insurance carriers. The lack of
sophisticated testing is preventing
the advancement of Alzheimer’s
disease treatment. And so goes
the old chicken or the egg problem. What families and patients can
do is to continue to participate in
Alzheimer’s disease research. Each
study results in additional information that is used to advance our
general knowledge, and help target
our approach to treatment. In the
meantime, efforts are being made
to identify the disease earlier and
earlier in order to try to stop the
disease before the later effects on
memory, personality and function.
November is
Alzheimer’s Disease
Month
848-7160
848-7160
A United Way
Agency
Companion - Fall 2013 / 11
9th Annual Alberta’s Fashion Show
By Kathy Montero, Community Services Coordinator
The 9th Annual Alberta’s Fashion
Show was held on June 9th at the Heritage Springs Country Club in Trinity.
Beautiful fashions were provided
by Patchington, and Store Manager,
Roberta (Bobbie) Tafelski, did a great
job as master of ceremonies.
Heritage Springs Country Club
served a fabulous lunch of stuffed
chicken with pesto cream sauce,
green beans, parsley buttered red potatoes, along with a garden salad and
cheesecake with strawberry sauce.
The show was enjoyed by all.
With more than 250 people in attendance, this event netted over
$12,000. Monies raised are used to
help individuals with dementia and
their families in our local community.
More than 30 door prizes were won
by attendees, and there were over 50
chances to win raffle prizes. There
also was a live auction and a 50/50
Raffle contest, with the winner winning over $530.
A big thank you goes out to the
committee; Crystal Menzie-Olson,
chairperson, and members; Sandy
Knapp, Debbie Humphrey, Judy
De Petrillo, Aida Norton-Polanco,
Alice Delgardo, and Lois Dye.
Thank you also to the many volunteers who helped at the event:
Dixie Sutton, Marge O’Drain, Dee
Dee Girven, Sharon Girven, Gia
Gilette, Gina Sylvestri, Bev Moore,
Beverly Wren, Elizabeth Sutton,
Kim Rothman, Laura Arnold, and
Laura Tuttle.
We would also like to thank our
beautiful models, who did a great
job: Crystal Menzie-Olson, Loretta
Cardiff, Too Haines, Noreen Loupis,
Judy De Petrillo, Rosalie Wylie,
Whitney Smyth, Stacey Cataldo,
Alice Delgardo and gentleman escort
John Brinker.
Thanks also go out to Michelle
Jarrell and her staff at Heritage
Springs for providing a wonderful
venue for the event, Patchington for
12 / Companion - Fall 2013
providing the beautiful fashions and
to Emeritus at La Casa Grande for
hosting our committee meetings.
Thank you to our
sponsors:
Above: Our lovely models.
Diamond
Seasons Memory Care
Sapphire
Arden Court of Tampa and Gulfside
Regional Hospice
Ticket Sponsor
Emerald
And Donors:
Ameriprise Financial – Anne C. Peterson, CFP, Bayada Home Health
Care, Community Service Council,
The HomeCare Team, Mederi Caretenders, The Pampering Plumber
Amethyst
Mary B. Archie, Realtor - Florida
Luxury Realty Trinity, Bayonet
Point Health and Rehabilitation
Center, Davis Family Hearing, Elder Assistance, Eldercare Counseling Services, Emeritus at La Casa,
Grande Gregory’s It’s About Time,
Hear Again Hearing Aid Company,
Horizon Bay Lutz, A Memorial – Ms.
Leonor Victoria Perez Paula, PACE,
Relocations & Estate Sales by Dixie,
Senior Living Guide, Toppers of New
Port Richey, Triad Technologies
Ruby
Heartfelt Florida Weddings, Jennifer
Gardens ALF, Lasting Legacy, MD
Complete Fitness Inc.
Pearl
Blo Hair Studio & Color Café,
Cadence Bank, The Central Pasco
Chamber of Commerce, Cooper
Financial Services, Barbara Epstein,
PA, Holiday Medical Associates,
Lia Sophia, Mary Kay - Mary Jane
Obergfell, Mary Kay - Crystal Olson,
Sandy Knapp, Monogram Zone, Creative Insurance Solutions, Westbrook
Manor Assisted Living & Memory
Care
Life Care Center
Ameriprise Financial – Anne C.
Peterson, CFP, A Perfect 10, Arden
Court, BJ’s Poochie Parlor, Blo Hair
Studio & Color Café, Megan Boyer,
Dolina Bois, Caposey’s Whole Works
Restaurant, Loretta Cardiff, Care
Placement Home Health, Castriota
Chevrolet, Central Park Family Restaurant, Chloe’s Creations Florist
Boutique, Chocolate by Michelle,
Christo’s Restaurant, Community
Florist, Curves, Alice Delgardo, Judy
DePetrillo, Jim Driscoll, Arbonne
- Lois Dye, Essential Bodywear,
Fantastic Sam’s Salon, The Isadora
ALF, Guardian Home Health Assisted
Living Facility, Too Haines, Hair by
Marie, Head to Toe, The Health Hut,
Home Helpers, The HomeCare Team,
Jennifer Gardens Assisted Living,
Keramer Professional, Sandy Knapp,
Lia Sophia – Crystal Olson, Little
Gift Basket Boutique, Noreen Loupis,
Mamma Mia Pizzeria, Mary Kay Crystal Olson, Massage Therapy of
Fl - Karen Amundson, Mia’s Massage
- Anne Rauh-Mars, Minuteman Press
- Bonnie Howard, MOSI-Museum of
Science & Industry - Vicki Ahrens,
Mr. Nikolas of NY -Nicholas Vairo,
Patchington, Salon De-Lani, Salon
Tre, Senior Home Care, Show Palace
Entertainment & Banquet Center,
Skin Care by Donna, Senior Living
Guide, Serenity Hair & Nails, Starlite
Cruises, Studio 52, Studs and Stones
4U Thirty One Gifts
A United Way
Agency
Thirteenth Annual “The Lily” Charity Golf Tournament
By Carol McCarthy, Community Educator
This event started 13 years ago
in Atlanta, Georgia when Deb
Schlofman’s mother, Lily, passed
away in 2001 after 7 years battling
Alzheimer’s disease. Deb wanted to
do something to help other families
with information about Alzheimer’s
disease and to help find a cure. She
enlisted the assistance of her partner,
Terry Peach, and two friends- Peggy
Emmart and Stephanie Truchan. Together, they planned the first annual
tournament. A few years later, Deb
and Terry moved to Florida and also
moved The Lily golf tournament
to The Villages. Tragically, Deb
Schlofman passed away suddenly
in December 2009, but Terry, Peggy
and Stephanie vowed to continue
the event in the names of both Lily
and Deb.
This year’s Lily Golf Tournament was held on Saturday, July 20th
at the Glenview Golf Course in The
Villages. This year the tournament
had 216 golfers and 45 volunteers
participate in the one day, ladiesonly event.
This year, The Lily golf tournament raised $51,000, and has raised
$336,000 over the past 13 years to
fight Alzheimer’s disease. The Alzheimer’s Family Organization will
receive half of the proceeds from the
event. With help from The Lily Golf
Tournament, we will be able to continue our work with the caregivers
and their loved ones, raise aware-
l Event Co-Chairs:
Stephanie Truchan, Terry Peach
and Peggy Emmart.
n Carol McCarthy, Community
Educator,Dominick De Petrillo,
Executive Director and Judy
De Petrillo receive a check from
The Lily Committee.
ness and provide valuable
community programs and
services in our counties.
The winners were announced at a banquet in the
evening at the Savannah
Center, and many trophies
were given out in a number
of categories.
This year’s sponsors included: Jenkins Auto Group,
Anita Krakower, Freedom Title &
Escrow Company, Garvin Financial
Group, LLC, Jackson National Life
Insurance Company, Judy Dressendorfer- Properties of The Villages,
Palm Ridge Dental, Dr. Kathleen
Williams, Realty Executives in The
Villages, Debbie & Frank Okruhlica,
Southern Trace Chiropractic & Massage Center, Dr. Michelle Zielecki
and Dr. Stephen Boyles, 1-800
Pest Control- Superior Services,
and the many more not listed who
volunteered their time, services and
provided other donations to make
this event a great success.
Next year’s event will be held on
Saturday, July 19th, 2013 at Glenview Golf Course in The Villages.
Registration will start in March,
2014. For information, go to the
website at thelily.org.
Special thanks to Alzheimer’s
Family Organization volunteers:
Don Wheatley, John Boaz, Cheryl
Courtright and Judy and Dominick
De Petrillo for volunteering their
time at the 13th Annual “The Lily”
Charity Golf Tournament and Banquet on July 20th in The Villages.
A very special thanks goes out to
Cheryl Courtright for soliciting gift
baskets from area businesses for the
silent auction.
“Caring is Our Business”



PT, OT and ST
CVA/Stroke Rehabilitation
Cardiac Precautions Training
(727) 849-6939
6630 Kentucky Ave
New Port Richey, FL
www.HeatherHillHealthcareCenter.com
A United Way
Agency
Companion - Fall 2013 / 13
Clinical Studies In Alzheimer’s At The USF Health Byrd Institute
By Shani Jefferson, M.A., Director, Communications and Marketing
At the USF Health Byrd Alzheimer’s Institute, one of the biggest research breakthroughs reported
is that amyloid protein is building up
in the brain years before Alzheimer’s
even starts. To adequately test viable drugs to remove this protein,
it is important that patients who
are most at-risk for the disease are
screened early for symptoms of
memory loss.
The Byrd Institute is a multidisciplinary Center of Excellence at
the University of South Florida and
one of the nation’s largest freestanding facilities dedicated to caring for
people with Alzheimer’s disease and
related memory disorders. The institute provides family-centered patient
care, performs laboratory research,
clinical research studies, and delivers quality public and professional
education. The institute offers free
screenings for memory loss yearround and has community-based
memory screening programs for
residents in The Villages, Sun City
Center and East Tampa, Florida.
Today, an estimated 500,000—or
1 in 40—Floridians suffer from Alzheimer’s disease. Florida has twice
as many Alzheimer’s patients per
capita as the national average. “We
do not need miracles. The tools to
prevent Alzheimer’s have been developed over the last five years. All
we need are the resources to perform
14 / Companion - Fall 2013
the extensive prevention studies
needed to prove the effectiveness
of drugs,” said Dave Morgan, PhD,
chief executive officer at the Byrd
Institute.
Before any drug or therapy can
be used in clinical practice, it must
be rigorously tested to find out
whether it is safe and effective. The
institute is involved in a number of
clinical research studies for various
stages of Alzheimer’s disease and
mild cognitive impairment. Several
of these studies investigate potential treatments that target harmful
plaques in the brain.
There has been interest in utilizing coconut oil as a treatment
option for individuals experiencing
memory loss. Researchers along
with Dr. Amanda Smith and Dr.
Balebail Raj at the Byrd Institute
are doing a study to investigate the
benefits of a coconut oil beverage
on individuals with mild to moderate Alzheimer’s disease. The study
is approximately 8 months long,
including a screening visit and a
one month post treatment follow-up.
There are two 3-month treatment
periods where all participants will
receive active study treatment during
one of the three month periods and
a placebo product during the other.
The participant will not know which
period they will receive the study
treatment. Neither the participant
nor research staff will know which
treatment they are receiving at any
time. At this time, the only location
for this research study is the USF
Health Byrd Alzheimer’s Institute.
Approximately 65 individuals will
be enrolled in the study. The doctor
in charge of this study is Dr. Amanda
Smith, medical director at the Byrd
Institute.
The USF Health Byrd Alzheimer’s Institute is located at 4001 E.
Fletcher Avenue, at the corner of
Bruce B. Downs Blvd and Fletcher
Ave on the University of South
Florida, Tampa campus. To schedule
an appointment or to learn more
about clinical trials in Alzheimer’s
disease, call (813) 974-4355 or visit
http://alz.health.usf.edu
UPCOMING EVENTS
Miles of Memories Tour
and Poker Run 2013
October 5th
Pasco County Golf
Tournament
November 9th
Seven Spring Country Club
New Port Richey
A United Way
Agency
Education Calendar
Stress Busters
FREE to Caregivers (Seating Is Limited)
10:00 am to 2:00 pm • Includes Continental Breakfast & Lunch / Chair Massages, Manicures…
Sumter – Friday, September 20 New Covenant United Methodist Church, 3470 Woodridge Dr., The Villages 32162
West Pasco – Friday, October 4 Regional Medical Center Bayonet Point, 14000 Fivay Rd., Hudson, FL 34667
Support Group Orientation / In-Service
For New/Present Support Group Leaders
Free to the Public • 9:30 am to 12:30 pm • Refreshments Will Be Served • Certificate of Attendance
Citrus County – September 27 Citrus County Resource Center, 2804 W. Marc Knighton Ct., Lecanto 34461
Pasco County – November 15
Emeritus at La Casa Grande, 6400 Trouble Creek Rd, New Port Richey, FL 34653
Choose Experts For Your
Dementia
and
Alzheimer’s Training!
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Sovonick, Ph.D.
Alicia Scott
Tracey Ramsey,
Social Worker
Our trainers…
• Are committed to serving caregivers and patients.
• Relate to the needs of your staff.
• Their knowledge is based on the latest research and data.
• Are part of a community based local organization - a resource that
continues after the training is completed.
State Required Dementia-Specific Training
Alzheimer’s Family Organization’s (AFO) Dementia-Specific curriculum has
been approved by the Florida Policy Exchange Center On Aging (FPECA)
for the Florida Department of Elder Affairs for purposes of meeting the
training requirement of S.400.452, F.S. and Rule 58A-5.0191, F.A.C.
A United Way
Agency
Companion - Fall 2013 / 15
Alzheimer's Family Organization / Full Circle Financial - TFA
Alzheimer's
Family
Organization
/ Full
Circle
Financial
- TFA
13th Annual Charity
Alzheimer's
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/ Full
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POOrganization
Box 1939
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terter
- New
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PA
12 Noon Italian
- Lunch Bistro
By:
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more
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or
to pay
- New Port Inn BRONZE
- Richard C. Williams, Jr., PA
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or
to pay
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727-848-8888 or
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16 / Companion - Fall 2013
A United Way
Agency
TESTIMONIALS FOR AFO…
HOW WE ARE HELPING
Jacqueline Caruso Larsen
Thanks to the Alzheimer Family
Organization, my life is somewhat
“normal” today. About this time four
years ago, my husband, Art Larsen,
USMC (Retired) and I were trying to
enjoy the fulltime RV life in South
Dakota. Art was experiencing the
effects of early dementia, and I was
trying to do everything possible to
entertain him. We visited Mount
Rushmore, drove through a herd of
buffalo, gambled in Deadwood and
checked out Sturgis a week before
the motorcycle event. I was always
wondering what I’d do next. We had
to settle somewhere and get treatment for Art’s illness.
Lo and behold, the cell phone
rang. It was a call from my friend,
Judy from Lady Lake saying she
found a rental for us near The
Villages. I said, “We’re in South
Dakota!” She replied, “You’d better turn around and step on the gas
because this rental won’t last!”
So we did, and this began my
journey into the unchartered waters
of “Caregiver.” Soon, our very first
edition of the Daily Sun arrived
on our doorstep, and I spotted the
schedule of the Alzheimer’s Family
Organization Support Group meetings. I also noticed that they had
an Early Stage meeting for patients
once a month. This seemed to be the
answer to my prayers. I knew so
little about this disease and how to
cope with it. The first meeting I attended was the Wednesday meeting
at North Lake Presbyterian Church
led by volunteer Jackie Preston
and assisted by Don Dati. They are
wonderful, warm, welcoming people
and full of information. There were
other members in the room with
similar problems, and when they
shared, I knew I was in the right
place. After that experience, I felt
comfortable enough to explore other
meetings in Arbor Village, New
Covenant United Methodist Church,
Lexington Park Assisted Living and
back to North Lake Presbyterian
Church for the Early Stage Patients
meeting held the third Thursday of
the month. I met Carol McCarthy,
the Community Educator from the
AFO, Carol Brooks the volunteer
leader, and Carol Emmanuel her
assistant. My husband attended
his first Early Stage meeting and
embraced it. I was shocked, as
I expected him to feel otherwise.
Soon thereafter I officially joined
the Alzheimer’s Family Organization. They offer so much to their
members, a Respite Care Assistance
Program, Wanderers Identification,
Support Groups, Help Line, Legal
Help, Training/Seminars, Speakers Bureau, Research, Emergency
Placement Directives, Emergency
Evacuation Registration and so
much more. I met and befriended
many fellow members, like Bill and
Katia McGuire. Bill volunteered to
lead our First Alzheimer’s Family
Support Walk, titled “We Walk Because We Care.” And we do.
My husband’s health has deteriorated in the past month due to a fall
at home which resulted in a broken
hip. The volunteers and members of
AFO were right there to guide and
help me through this ongoing saga of
caregiving. I shall be forever grateful, especially
to Carol Emmanuel, who has
been there for us
throughout this
journey.
VOLUNTEER
SPOTLIGHT
By Steve Davis, M.S.,
Editorial Staff
Tom and Bev Wren
The Wrens moved to Florida
from Fairport, N.Y. in 2001. Tom
is a retired deputy sheriff lieutenant for Monroe County (Rochester,
N.Y.). Beverly is a retired RN with
the American Red Cross.
The Wrens learned about AFO
from Irene Thompson of Full Circle
Financial. Tom’s stepfather passed in
2004, only a year after having been
diagnosed with Alzheimer’s.
Tom and Beverly love volunteering for AFO, helping out whenever
and wherever they can. “Good health
is important to us; we try to keep
active and fit.”
We want to hear from you!
Have our services and programs helped you?
Please let us know by emailing us at:
[email protected] or you may mail it to:
P.O. Box 1939, New Port Richey, FL 34656-1939.
A United Way
Agency
Companion - Fall 2013 / 17
Alzheimers Family Org-10-30-12:Layout 1
10/30/2012
1:33 PM
Page 1
Excellence Through Senior Advocacy!
Your partner in Home Health Care Solutions
WE ARE A RECOGNIZED LEADER IN HOME HEALTH CARE WITH OVER 30 YEARS EXPERIENCE
Our caring team looks beyond the obvious to help patients realize their full potential!
We can help caregivers and patients cope with:
❖
❖
❖
Cognitive impairment
Short term memory loss
Agitation behavior management strategies
❖ Aggressive
behavior
Have you ever wondered what your loved one struggles with on a day-to-day basis? Our Virtual
Dementia Tour is designed to help caregivers better identify with their loved ones. Learning to create
a positive environment for those with Dementia can only come from “walking in their shoes.”
Call today to schedule your Virtual Dementia Tour (727) 260-6674
You can also call your local branch for more information
Brooksville
License: 21822096
(352) 592-1424 Fax: (352) 592-1477
New Port Richey (727) 844-3615 Fax: (727) 938-9434
License: 299991714
Zephyrhills
License: 299991893
Leesburg
(352) 323-5570 Fax: (352) 323-5579
The Villages
(352) 753-9119 Fax: (352) 753-0097
License: 20654096
License: 299992209
(813) 395-6950 Fax: (813) 395-6956
Medicare and Tricare Certified
www.almostfamily.com
18 / Companion - Fall 2013
A United Way
Agency
Transportation Issues For The Elderly
By Mellaney Lesniewski, Community Resource Coordinator
According to the Administra- isolation. For those that can’t rely your local Office on Aging. That oftion on Aging, by the year 2030 the on family and friends for their trans- fice will help you find transportation
number of drivers over age 85 will portation needs, it is necessary to services in your community.
Another place to visit is www.
be 4–5 times what it is today. For find community resources to provide
the existing elderly population, one transportation, as this vital support safeandmobileseniors.org, a reof the reasons many older people service may be their only connection source site designed to help an
older adult, family members, friend
might continue to drive beyond the to the outside world.
time they can safely do so is because
There are three basic types of or caregiver to stay connected to
they feel they have no other trans- transportation services for the el- the latest transportation safety and
portation choices to get to where derly. Fees for each type will vary, mobility resources and information
they need and want to go. And be- as will the availability. Types of available in Florida. Visit www.
cause the skills and abilities associ- transportation that may be available fssrc.phhp.ufl.edu to access a listing
ated with driving tend to diminish include: individual door-to-door of the currently available alternawith age, viable alternate forms of service, fixed route with scheduled tive transportation services in your
transportation for the elderly will services, or ridesharing with volun- county.
The National Transit Hotline can
continue to be an important issue teer drivers.
for years to come.
A good place to start your search provide the names of local transit
The availability of adequate for transportation is your local providers who receive federal montransportation enables older per- Area Agency on Aging. Visit www. ey to provide transportation to the
sons to independently live in their eldercare.gov or call the Eldercare elderly and people with disabilities.
communities and helps to prevent Locater at 800-677-1116 and ask for Call toll free 1-800-527-8279.
A United Way
Agency
Companion - Fall 2013 / 19
Simply Delicious!
Dilled Cucumber Salad
(Taken from Ready Set Eat Website - http://www.readyseteat.com/recipes)
Ingredients:
1/2cup plain low-fat yogurt
1/4cup light Italian dressing
2 teaspoons dried dill weed
2 large cucumbers, halved
lengthwise, sliced
(2 large = 3 cups)
1 can (14.5 oz each) diced
tomatoes, drained
1/4cup thinly sliced red onion
1/8teaspoon salt
20 / Companion - Fall 2013
Prep: 15 minutes
Serving Size:
6 Servings (3/4 cup each)
Directions:
Stir together yogurt, dressing
and dill in large bowl. Add all
remaining ingredients; stir gently
to combine.
Nutritional info*
per serving
% Daily
Value*
Total fat
1 g
2%
Saturated fat 0 g
1%
Cholesterol
2 mg
1%
Sodium
258 mg
11%
Carbohydrate 7 g
2%
Dietary fiber 2 g
6%
Sugars
5 g
0%
Protein
2 g
4%
Vitamin A 5%
Vitamin C 14%
Calcium 7%
Iron 5%
* Percent Daily Values are
based on a 2,000 calorie diet.
A United Way
Agency
Alzheimer’s Family Organization Support Groups
CITRUS
People touched by Alzheimer’s disease and other related disorders come together in a
non-judgmental, safe environment to vent their frustrations, share coping techniques,
learn more about the disease and discover what resources are available to them.
Interim Healthcare
Sterling House
Sugarmill Manor ALF
(Respite Care Provided During Meeting)
8985 S. Suncoast Blvd., Homosassa, FL 34446
Last Wednesday of the month at 2:00 PM
Leader:
Bevin Brayton
352-302-9066
Sunshine Gardens of Crystal River
311 NE 4th Ave., Crystal River, FL 34429
1st and 3rd Thursday of the month at 2:30 PM
Leader:
Debbie Selsavage
352-563-0235
Superior Residence Memory Care - Lecanto
4865 West Gulf to Lake Hwy, Lecanto, FL 34461
3rd Thursday of the month at 2:30 PM
Leader:
Debbie O’Leary, RN 352-746-5483
9738 US Hwy. 441, Ste. 103, Leesburg, FL 34788
4th Tuesday of the month at 1:00 PM
Leader: Sheryl Root 352-326-0400
Lake Eustis Christian Church
315 E. Orange Ave., Eustis, FL 32726
2nd and 4th Thursday of the month at 1:30 PM
Leader: Rick Wiggins 352-636-8517
Lake Harris Healthcare
(Free Respite Care During Meeting)
Lake Port Square • Lakeside West Building
821 Lake Port Blvd., Leesburg, FL 34748
2nd Friday of the month at 2:00 PM
Leader: Chrystie Brooks
352-728-8529
HERNANDO
For Caregivers Dealing with Newly
Diagnosed Patients
Medical Arts Bldg. – Ste. 120
17222 Hospital Blvd., Brooksville, FL 34601
Every Monday of the month at 1:00 PM
Leader:
John Winans
352-232-0081
930 County Rd. 466, Lady Lake, FL 32159
1st Tuesday of the month at 2:00 PM
Leader:
Conne Towler
352-753-5881
Brooksville Regional Hospital
Hernando County Mining Association
Enrichment Center
800 John Gary Grubbs Blvd., Brooksville, FL 34601
3rd Tuesday of the month at 1:00 PM
Leader:
John Winans
352-232-0081
Spring Hill Hospital
Medical Arts Bldg. – Ste. 105
10441 Quality Drive, Spring Hill, FL 34609
2nd Wednesday of the month at 1:00 PM
Leader:
Pam Penna
352-688-1262
Sterling House of Spring Hill Assisted Living
10440 Palmgren Lane, Spring Hill, FL 34608
1st Wednesday of the month at 2:30 PM
Leader:
John Winans
352-232-0081
HILLSBOROUGH
Arden Courts – (Free Respite Care Provided
During Meeting – You must RSVP to use this service)
14950 Casey Road, Tampa, FL 33624
3rd Tuesday of the month at 6:30 PM
Leader:
Debra Johnston
813-963-6100
LAKE
Avante at Leesburg Nursing & Rehab Center
(Free Respite Care During Meeting – RSVP to Dori)
2000 Edgewood Ave., Leesburg, FL 34748
3rd Thursday of the month at 1:00 PM
Leader:
Doreen Watson-Beard 352-217-6476
Bridgewater @ Waterman Village
(Free Respite Care During Meeting)
500 Waterman Ave., Mt. Dora, FL 32757
3rd Wednesday of the month at 1:30 PM
Leader:
Chaplain Alan Jones 352-385-1133
Chapel of Christian Faith
1401 Paradise Drive, Lady Lake, FL 32159
3rd Thursday of the month at 10:00 AM
Leader:
Martha Hyatt
352-748-7633
Cooper Memorial Library – Room 108B
2525 Oakley Seaver Dr., Clermont, FL 34711
3rd Thursday of the month at 2:00 PM
Leader:
Deborah Snow
352-406-8465
Home Companions Senior Care
2785 S. Bay Street, Suite D, Eustis, FL 32726
4th Tuesday of the month at 10:00 AM
Co-leaders: Kellie Keith
352-483-3086
Jenny Vibert
A United Way
Agency
Lexington Park
(Free Respite Care During Meeting)
700 South Lake St., Leesburg, FL 34748
3rd Thursday of the month at 2:00 p.m.
Co-leaders: Maegan Safford
352-728-6661
Ruth Cantillon
352-728-6666
Superior Residences of Clermont
Assisted Living Community
1600 Hunt Trace Boulevard, Clermont, FL
1st Monday of the month at 3:00 PM
Leader: Lindsay Finkbeiner 352-394-5549
United Congregational Church
302 N. St. Claire Abrams Ave., Tavares, FL 32778
2nd Wednesday of the month at noon
Co-leaders: Cheryl Fletcher 352-409-5360
Lori Wintersdorf 352-267-4205
MARION
Villages Support Group
North Campus Rehab & Nursing Center
Mulberry Grove Recreation Center
8445 SE 165th Street, The Villages, FL 32162
2nd Wednesday of the month at 6:30 PM
Co-leaders: Leah Fredrick 352-751-1808
Greg Church
352-446-4203
Carol Brooks 352-259-0256
Early Stage Group (for early stage patients)
CENTRAL PASCO
700 N. Palmetto Street, Leesburg, FL 34748
2nd Wednesday of the month at 2:00 PM
Leader:
Cheryl Fletcher
352-409-5360
North Lake Presbyterian Church
Fellowship Center Room 2
975 Rolling Acres Rd., Lady Lake, FL 32159
3rd Thursday of the month at 1:00 PM
Co-leaders: Cheryl Courtright
352-552-4708
Carol Emmanuel
352-753-5707
Carol Brooks
352-259-0256
North Lake Presbyterian Church
975 Rolling Acres Rd., Lady Lake, FL 32159
1st Wednesday of the month at 1:00 PM
Co-leaders: Jackie Preston
352-259-0937
Louise Shuey
352-753-8262
3rd Wednesday of the month at 1:00 PM
Co-leaders: Louise Shuey
352-753-8262
Don Dati
352-259-5363
Osprey Lodge Assisted Living & Memory
1761 Nightingale Lane, Tavares, FL 32778
2nd and 4th Thursday of the month at 1:30 PM
Leader:
Rick Wiggins 352-636-8517
Somerset Assisted Living Facility
(Respite Care Provided During Meeting)
2450 Dora Ave., Tavares, FL 32778
2nd and 4th Friday of the month at 2:00 PM
Co-leaders: Betty Lee 352-638-5394
Toni O’Donnell
352-343-6483
Southpointe Baptist Fellowship
25900 US Hwy. 27, Leesburg, FL 34748
1st Monday of the month at 10:00 AM
Co-leaders: Pamela Schmitz
352-396-6927
Christen Wilson
352-638-0804
Springs of Lady Lake Assisted Living Comm.
620 Griffin Ave., Lady Lake, FL 32159
2nd Tuesday of the month at 10:00 AM
Leader:
Julie Watson 352-396-3911
St. Timothy Catholic Church
1351 Paige Place, Lady Lake, FL 32159
4th Friday of the month at 1:00 PM
Leader: Pam Gilhooly 352-205-7121
Home Instead Senior Care Wesley Chapel
29149 Chapel Park Dr., Wesley Chapel, FL 33543
2nd Tuesday of the month at 10:00 AM
Co-leaders: Michele Bonneville 813-991-7524
Donna Alford
EAST PASCO
Heritage Park
37135 Coleman Avenue, Dade City, FL 33525
4th Tuesday of the month at 4:00 PM
Co-leaders: Mary Beth Lumbra
352-567-8615
Nila Premer
Westbrooke Manor
(Free Respite Care During Meeting)
6701 Dairy Road, Zephyrhills, FL 33542
1st Thursday of the month at 10:00 AM
Leader:
Alyson Stanina
813-782-4417
Zephyr Haven Health & Rehab Center
38250 Avenue A, Zephyrhills, FL 33542
4th Monday of the month at 3:00 PM
Co-leaders: Chap. George Carpenter 813-782-5508
Sharon Albone
WEST PASCO
Claude Pepper Senior Center
6640 Van Buren St., New Port Richey, FL 34653
3rd Tuesday of the month at 1:30 PM
Leader: Elizabeth Heyne
727-844-3077
The Cottages
5905 Pinehill Rd., Port Richey, FL 34668
Last Thursday of the month at 2:00 PM
Leader:
Vicky Hudgins
727-845-0527
Emeritus at La Casa Grande
6400 Trouble Creek Rd., New Port Richey, FL 34653
1st Wednesday of the month at 6:00 PM
Leader:
Carole Pollard
727-937-6943
8
Support Groups Continued
on bottom of page 22
Companion - Fall 2013 / 21
Alzheimer’s Family Organization Services
For more information please call 727-848-8888 or 888-496-8004.
1. Respite Care Assistance Program
Affairs.
The Respite Care Assistance Program 8. Speakers Bureau
provides financial assistance to Or- Alzheimer’s Family Organization memganization members and their loved
bers are available to speak to commuones. The caregiver arranges their
nity groups.
own respite care services using either
in-home services provided through a 9. Research
home health agency, a neighbor or Encouraging and supporting research
into causes, improved diagnosis,
friend, or institutionally-based short
therapy, cures for and prevention of
term respite, such as adult day care,
Alzheimer’s disease and related disorALF, nursing home care. Call the office
ders.
for details.
2. Wanderer’s Identification
Program
10. Emergency Placement
Directives
Helps identify, with a pendant or brace- This service for our members will help
ease caregivers’ minds. Emergency
let, a wandering person who suffers
Placement Directives allows the carefrom memory loss and quickly returns
giver the opportunity to ensure that,
them to their home or facility. Free to
in the event of an emergency to the
members/$30 for non-members/$20
caregiver, the dementia patient will be
for corporate members.
cared for.
event of respiratory of cardiac arrest.
It is a physician’s order, signed and
dated. In order to be legally valid, this
form MUST be printed on YELLOW
legal paper prior to being completed.
EMS and medical personnel are only
required to honor the form if it is printed
on YELLOW legal paper.
13. Alzheimer’s Related Books
Available for viewing at the Organization office. The book “36 Hour Day” is
also available for $5.00 plus shipping.
14. Resource Lists
Essential listings and contact information for Alzheimer’s related facilities,
programs, and services.
15. Emergency Evacuation
Registration
A pre-arrangement for individuals with
special needs to ensure safe evacuation
prior to emergency situations. Pasco
County Only. We have forms for all
counties available.
3. Support Groups
Our support groups are for family mem- 11. Pardon My Companion Card
bers, caregivers and others interested This allows the caregiver the opportunity to offer a card containing informain learning more about Alzheimer’s
tion about Alzheimer’s disease and an 16. Memory Screenings
disease and how to cope. The meetexplanation concerning any unusual A simple and safe evaluation tool
ings are free and everyone is welcome.
behavior by the Alzheimer’s disease
that checks memory. It can indicate
For program information and to verify
patient
while
in
public.
whether an additional checkup by
meeting date and time, please use
a qualified healthcare professional
phone contacts listed under the group 12. Do Not Resuscitate Order
is needed.
(DNRO Forms)
name. List on page 21.
A form used to identify people who 17. Facebook
4. Help Line
do not wish to be resuscitated in the Go to www.facebook.com/AFO.fl
The Help-Line provides a telephone
volunteer service to persons wanting
information about caring for a loved Support Groups Continued from
Homewood at Freedom Pointe
one with Alzheimer’s disease or related page 21
(Free Respite Care During Meeting)
1475 El Camino Real, The Villages, FL 32159
dementias. Please see page 2 for a list4th Tuesday of the month at 11:00 AM
ing of your county representatives.
Co-leaders: Holly Rische
352-750-3800
5. Interactive Website
The AFO website is a one-stop resource—easy to use and full of helpful
hints such as up-to-date community
information, links and interactive video.
It also offers a BLOG, where you can
discuss caregiving and coping issues
with other caregivers and professionals.
6. Caregiver Days/Seminars
Training provided for family caregivers and professional care providers
to those suffering from Alzheimer’s
disease and related dementias.
7. Trainings
ALF and Home Health Agency
Dementia Specific Trainings are
available to professionals. Training
is approved by the Dept. of Elder
22 / Companion - Fall 2013
Oakview Terrace
7220 Baillie Dr., New Port Richey, FL 34653
Last Tuesday of the month at 11:00 AM
Leader:
Dina Giannet
727-842-9899
Regional Medical Center Bayonet Point
14000 Fivay Rd., Hudson, FL 34667
1st Tuesday of the month at 10:00 AM
Leader:
Laura Arnold
727-863-0176
727-808-2053
PINELLAS
Sunset Harbor Assisted Living
522 Doric Court, Tarpon Springs, FL 34489
1st Thursday of the month at 4:30 PM
Leader:
Byron Richards
727-940-4781
SUMTER
Arbor Village – (Free Respite Care During Meeting)
490 S. Old Wire Road, Wildwood, FL 34785
Every Monday of the month at 9:30 AM
Co-leaders: Judy Dollard-Simms 352-399-6105
Sharon Schactman
352-350-1538
Deborah Wells
Mission Oaks
10780 N US Hwy 301, Oxford, FL 34484
2nd Monday of the month at 2:00 PM
Leader:
Cheryl Fletcher
352-409-5360
New Covenant United Methodist Church
(Free Respite Care During Meeting)
3470 Woodridge Drive, The Villages, FL 32162
1st through 4th Thursday of the month at 10:00 AM
Co-leaders: Jackie Preston 352-259-0937
Louise Shuey
352-753-8262
Rochelle Holcombe 352-259-1243
Sumter Place in the Villages
(Free Respite Care During Meeting)
1550 Killingsworth Way, The Villages, FL 32162
1st Wednesday of the month at 3:30 PM
Co-leaders: Cheryl Courtright 352-552-4708
Carol McCarthy
352-454-8303
Temple Shalom
13563 County Rd 101, Oxford, FL 34484
Last Monday of the month at 10:00 AM
Co-Leaders: Leah Frederick
352-751-1808
Sharon Schactman
352-350-1538
A United Way
Agency
Donations, Contributions and Memberships
We try to correctly spell all names. However, if we have not done so, please let us
know and we will correctly spell it for our next issue. Also, if you do not want to
have your name listed, please let us know when you make your contribution. We
appreciate each and every one of you who have donated, contributed, or become
members of our Organization. Where would we be without you? Thank you for believing in what we do, and for
helping us fulfill our commitment to preserve the independence, quality of life and personal dignity of persons afflicted
with Alzheimer’s disease and other related dementias, and their caregivers throughout the Central Florida area.
Generous Donations & Memberships from February 5 to July 26, 2013
CORPORATE PLUS MEMBERS - $500
Publix Super Markets Charities
Debbie Selsavage,
Executive Director
of Sunshine Gardens
presented John Winans
with a $400 check.
CORPORATE MEMBERS - $300
Sunshine Christian Homes
Mission Oaks
Waterman Village
Zephyr Haven Health & Rehabilitation
OTHER $100 OR MORE DONATIONS
Dawne L. Carn............................... $970.95
Sharon L. Dillon............................. $196.85
PAN...................................................... $106
Dorothy M. Reynolds.......................... $100
FRIENDS ($100)
Dane Johnson
Superior Residences Debra Jordan
Barbara Kelly
of Lecanto
Ray. A. Krasley
Abidance
Karla Eppley
HomeHealth
Lindeen
Laura Arnold
Paul Lallanilla
R. Massa
Brenda McAfee
MEMBERS ($50)
Arlene McCarville
Donna Alford
Barbara Mollica
Larry Butler
Robert & Lee
Ada Carabollo
Moscicki
Sally M. Carlson
Ronald
Paladini
Barbara Cope
Joanne Richards
Brigid Cutler
Paulette Scott
Barbara Dalton
Deborah Densmore Anita Singer
Lora Slingerland
Carolyn B. Dilks
Sandra Stephenson
Walter Dillings
Jacqueline A.
Ann Drysdale
Stevens
Helen Ellers
Ruth
Swart
Janice M. Flanagan
Linda Torrence
Abraham J. Fox
Joan Thaxton
John Goudy
Marvin Ummel
Ann Groscurth
E. Jane Wentworth
Daniel Hasley
Sue E. Wicklund
James Hilton
Rick Wiggins
Judy-Ann Horton
Janet F. Jacobs
A United Way
Agency
Memorials
Glenn Borber
Marion B. McSperrin
Jack Maltz
Mr. & Mrs. Bill Cerroni
Thomas Crawford
Laura & Al Grigull
Sally & Keith Downs
Revella Norman
Mrs. Joan Deluca
Nancy & Robert
Maroney
Bonnie & Keith Siglin
Mr. & Mrs. Jansco
MaryJane Mergen
Jon H. Stripling
Mr. & Mrs. Frank H.
Schoone
Harold & Edith
DeLamateo
Joanne Jameson
Mary Jo Faller
The Hogan’s
Elizabeth Merryfied
Roger & Sue Murray
Herman & Kathleen
Tiell
Evelyn Merryfied
Jordan & Colon Nichols
Dan & Melanie Miller
Ann Davis
Una Powell
Ted Pattison
Arlene Pattison
John E. Diener
Dennis A. Drosendahl
Maryilyn M. Cramton
Thelma Beck
Annette Robinson
Cynthia Roberts
Vernon Glenn
Joanne Glenn
Sue Wobser
Pat Stitsinger
Nancy Black
Jerry & Pat Wirtz
Jim & Charlene Sawyer
Jeannie Winter
Marylou & Bill Warman
Rose Peterson
Chuck & Patty Chadwell
Alan & Ruth Carroll
Thomas Hefler/The
Volrath Co.
Rio Ranchero
Janice Pearson
Ellen Mohrman
John & Susan Getz
Morris
Ms. Karen R. Kowell
Mickey Stuart
Albet & Jackie Clark
Emilio Toro
Audrey Gallagher
Kenneth Walker, Sr.
Mr. & Mrs. Robert
Moncsko
Laurie & Randy Stone
Twedis Walker-Merrel
Robert Warren
North American Drillers,
LLC
Companion - Fall 2013 / 23
THIS WILL NOT
PRINT –
FPO
THIS WILL NOT
PRINT –
FPO
Published by
Alzheimer’s Family Organization
FAMILY IS OUR MIDDLE NAME
Companion
Non-Profit Organization
U.S. Postage
PAID
Tampa, FL
Permit #6328
P.O. Box 1939
New Port Richey, FL 34656-1939
727-848-8888 • 888-496-8004
E-mail: [email protected]
Web Site: www.alzheimersfamily.org
facebook.com/AFO.FL
HAVE YOU MOVED??? If your address has changed, please let us know.
For more information please call 888-496-8004 or 727-848-8888
The Alzheimer’s Family Organization needs your support to
carry on all of the services we offer including support groups,
the Helpline, the Newsletter and other activities to assist
families coping with Alzheimer’s disease and other dementias.
qYES, I would like to be a volunteer for the Alzheimer’s Family
Organization.
qYES, I would like to support the work of the Alzheimer’s Family
Organization through membership, which entitles me to receive
the newsletter, updates on research and notification of caregiver
days/seminars.
Name __________________________________________________________
Address _______________________________________ County __________
City _______________________________ State ______ Zip _____________
Home Phone ( _______ ) __________________________________________
Email __________________________________________________________
Enclosed is my tax deductible membership contribution of:
q $300 Corporate
q $50 Member
(organization, agency, nursing home or ALF)
q $100 Friend
q $500 Corporate Plus
q $500 Lifetime
(organization, agency, nursing home or ALF)
q $1000 Alzheimer’s Angel
We accept MasterCard, Visa and Discover
How to Make a Bequest to the
Alzheimer’s Family Organization
Speak with your attorney about the advantages
of estate planning and how your will can
benefit both your loved ones and the
Alzheimer’s Family Organization. If you already
have a will, your lawyer may add a codicil to
it. If you don’t have a will, the bequest can be
included when your will is drafted.
Enclosed is my tax deductible donation of
$ __________________________________
Please dedicate my donation
in honor of/in memory of:
(Name) _________________________________
And notify:
Name __________________________________
Address ________________________________
City ________________ State ____ Zip _______
Sent by ________________________________
Address ________________________________
City ________________ State ____ Zip _______