reaching - Epilepsy Support Network of Orange County

of Orange County
REACHING
OUT
ESNOC APRIL 2012
Join us for our most meaningful
fundraiser, as people gather with
friends, family, and as a community
to celebrate a day for people
with epilepsy.
April 28th marks our third annual Epilepsy
Walk Orange County. We walk for the
thousands of Orange County residents
affected by epilepsy, with special interest
in the approximate 11,200 individuals who
continue to have seizures that are unable to
be controlled by medication, as well as the
10,000 others who only experience seizure
SEIZU
RES
STOP
EPILEPSY WALK ORANGE COUNTY
4.28.2012
EPILEPSY SUPPORT NETWORK OF ORANGE COUNTY
Two time Epilepsy Walk OC Top Fundraiser, Savannah Salazar, strolls with her team,
Savannah’s Slamajammas on the EWOC 2011 parade route. They are back this year
as Savannah’s Pajamas - look for her again on the leader board!
control at the cost of debilitating side effects
from medications. It is essential to enable
ESNOC to offer its programs and services
at no charge to community members.
Participants will get started at 8:30 am to
check-in at Registration. Spirits will be high
and participants can decorate signs to stand
out in the crowd. Walgreens HB is sponsoring this year’s Spirit Booth for that last
minute rally. Be sure to stop by early while
supplies last. At 9:45 am the celebratory
parade will begin and the Epilepsy Walk OC
Grand Marshalls will judge for the Walkers
Showing the Greatest Team Spirit.
THANK YOU
ESNOC is proud to announce these
outstanding members in our network...
Drs. Mona Sazgar and Richard Kim are
newly esteemed members of the ESNOC
Advisory Board. Their professional
contributions are greatly appreciated.
Thank you to our Letter of Appeal
Donors who through their generous
donation, have helped us raise $7,560.
There are more ways to win, as there is still
time to be one of the first 20 team captains
to raise $300, and win 10 carnival tickets.
Another great way to win is to be one of
the top five fundraisers. We are watching the
leader board for some new names to join
Continued on the next page.
Names to
be published
in our Fall
newsletter.
Donations at Work
Building a Healthy Brain
The most vulnerable population, 0-2 year
olds, has the highest incidence of epilepsy,
yet many of their seizures types are not
recognized or diagnosed. Our Community
Education and Early Intervention program,
Building a Healthy Brain, is bringing awareness to hundreds of parents through parent
educations programs and organizations. Offering our free presentations to the greatest
“at-risk” population in Orange County will
hopefully result
in early detection and optimum
treatment. There
is a great urgency
in detecting and
controlling seizures for the best
possible outcomes
for these young
children. Seizures need to be stopped
as soon as possible to preserve the
developing brain from damage.
Last year we educated 380 parents of
young children. Seizure Recognition and
First Aid, our most requested presentation, educated 523 teachers. For 2010
to this date we have educated over
1,400 individuals and continue to provide these services to our community.
continued from page one
All of our teams are winners of the Epilepsy
Walk OC. So, Team Captains be sure to
gather your members for a team photo. Joe
Belanger will be donating his professional
photography services to capture the memory.
The ticket booth will begin selling tickets at
10 am with booths opening at 10:15. There
will be twenty-eight game and food booths
this year, thanks to our many Wish List Sponsors. Whether you flex at Muscle Man or
relax at the Massage Therapy, you’ll want to
put your bid in at the Silent Auction when
you see the fantastic items received for this
special day: Knotts Berry Farm Tickets, Angels
Tickets, Golf Lessons, Jewelry and more...
Corporate Sponsors
Wish List Sponsors
Team Ticket Winners
3rd year Sponsors
The Duemey Family
Snyder Langston
Golden Spoons
The Rojo Family
The Dilliplaine Family
The Schlutz Family
Kaylyn Clemons & Family
Samantha Young & Family
Best Wishes from the Cobb Family
The Rye Girls
The Land Family
The Miles Family
In Support of Koa
Dr. Ruxanda Ghibu, DMD
In Support of Natalie Pembleton
Deacon’s Dino Dig, The Tarvin Family
Vitale Family
Walgreens
our previous walk winners Savannah
Salazar, Kaylyn Clemons, David Tarvin,
Madison Weizoerick, Danielle Gunther and
Brooke Dilliplaine.
Epilepsy Walk Orange County
885 Junipero Drive, Costa Mesa, CA
www.EpilepsyWalkOC.kintera.org
2nd Year Sponsors
CHOC Children
Neuroscience Institute
Strokes
Reviva
1st Year Sponsors
Hoag Neurosciences
Winthrop Couchot
Collin’s Builders, Inc.
LL’s Enterprise
Stress Reduction Center, Inc.
Coastal Home Health Services
Volunteer corner
Theresa Stephens, specialty Public Relations
Everyone has their
own way of coping
with their past and volunteering for ESNOC
is mine. After explaining to my doctor that
I was having feelings
of dejavu and brief
lapses of awareness
she referred me to a therapist. I must be
going crazy right? It went from there...“She
is mentally stable, perhaps she needs an
endocrinologist?” After a year with her trying
to figure out what was going on with me my
seizures were getting progressively worse
and I finally collapsed. My husband took me
to our local urgent care doctor who referred
me to another endocrinologist. She said 7
words I will never forget...“So, when did
you start having seizures?” It has been ten
years since I have been properly diagnosed.
Working hard with my neurologist over the
years to find the right medications, and all
that goes in-between, my seizures are under
control. I am one of the few lucky ones. A
decade ago I made a promise to help others
with epilepsy. I’m now moving forward.
Gifts Inkind
Mobile Kitchens USA
SNR Graphics
Joe Belanger
Lundbeck
Team Mareena, Team Kaylyn, Team Matthew,
Her Royal Madjesty, Team Ashlock, Savannah’s
Pajamas, Kayla’s Lady Bugs, The Dreamers,
Leslie, Team Tarvin, Team Danielle, Phoenix
and Sierra’s Seizure Busters... more to follow EWOC 2012 is Presented by
Committee Members
Jim and Joan Ashlock
Robin Kish
Georgia Durst
Temre Marsh
Lori Forman
Janna Moore
Jill Foster
Sue Perez
Norene Gill
Theresa Stephens
Lisa Gordon
Alison Simonton
Jennifer Gunther
Debbie Simonton
Debbie Hansen
Wendy Tarvin
Gregory & Jaclyn Johnson
All inclusions as of 3/30/2012
NOTHING GREAT WAS EVER ACHIEVED WITHOUT ENTHUSIASM. - Ralph Waldo Emerson
Donations at Work
Knowing that you are not alone and being
able to talk about problems in a safe environment without fear of judgement can work
wonders to improve a person’s outlook on
life. Along with Dr. Larkin’s effective advice,
you will find acceptance, understanding, compassion, support and encouragement from
group members. Just as importantly…no co-
April 13 | Friday, 6-8:45 pm
Emotional Support for Parents, led by
Phyllis Larkin, PsyD, she will help you put
a positive spin on our emotional triggers.
Adult and Parent Educational
Support Groups will discuss Identifying
and Eliminating Seizure Triggers
Dr. Diane Stein will emphasize the importance
of keeping track of any factors that may precipitate a seizure in you (also called seizure triggers)
Parents can also do this for their children with
epilepsy. Her experience with adults and children
with epilepsy will help everyone better identify
and understand the balance between quality
of life choices and the physical, emotional and
environmental factors that affect your epilepsy.
Teen Club, Jennifer Leath, PsyD will tackle
social skills through entertaining activities.
payment, pre-authorization or bills. We offer
this service in order to keep parents healthy
as they care for their child with epilepsy.
Parents develop effective skills and a greater
confidence when facing:
• Emotions and Stress following an epilepsy diagnosis in their child
• Parenting for a special needs child
• Sibling Relationships
• Spouse Relationships
• Fatigue/Low energy levels
• Post Traumatic Stress Disorder (PTSD)
Please ask us about our On-line support
group to keep in touch with the parents you
meet in Dr. Larkin’s group.
MISSION STATEMENT | Epilepsy Support Network of Orange County is a 501(c)
(3) non-profit organization committed to building a community of support to improve
the lives of those affected by epilepsy through education, support, and advocacy.
What’s Coming Up?
May’s Support Group meetings While the parents are focusing on their
child’s educational goals, adults can make
valuable contributions in our first ever focus
group. We are asking important questions
to help improve our services to our adult
population. Make sure you participate in
this conversation.
24/7 Online Support Group for Parents is at
Yahoo Groups.com. Search OCEpilepsy
Special thanks to those members who
have been carpooling others to ESNOC
Support Group meetings. We appreciate
your committment toward building a community of support for those who might not,
otherwise, be able to attend.
Friday Friends Club, 6-8:45 pm, ages 1-12
years of age.
2012 Calendar 2nd Friday/Month
Meeting location: HOAG Hospital, Irvine
16200 Sand Canyon Avenue
Irvine, CA, 92618
Jan 13Epilepsy in the New Year,
an Overview
Feb 10What is Your Epilepsy Diagnosis?
Relief is one meeting away!
Phyllis Larkin, PsyD has been helping parents
through the unique and challenging dynamics
of an epilepsy diagnosis for over 9 years. She
specializes in epilepsy and brings her passion
to ESNOC’s Emotional Support Group for
Parents. We provide a safe and encouraging
environment, bringing together parents who
are experiencing similar situations.
Calendar
Mar 9March Medication Madness
Staff
Jennifer Gunther
Executive Director
Janna L. Moore, MPA
Director of Programs
Denise Wada
Director of Marketing
Temre Marsh
Childcare Coordinator
Jackie Wilson
April 28Epilepsy Walk 2012
Phyllis Larkin, PsyD
Jun 8Anxiety & Depression in Epilepsy
Jul 13Social Connectedness
Aug 10Latest in Epilepsy Research,
An Overview with Dr. Salazar
Sept 14Navigating the Epilepsy Road Map
Oct 12Epilepsy Diet and Fitness
November is Epilepsy Awareness Month
Nov 9Talk with the Doc
Resource Fair
Dec 8Holiday Party
ESNOC’s Teen Coordinator, Dr. Jennifer
Leath and husband Chad Nimmo, are due
to deliver their first child in July. Teen Club
will continue during her two month
maternity leave.
GET TO KNOW US
Apr 13Identifying and Eliminating
Seizure Triggers
May 11Individualized Education
Program – Parents
Focus Group – Adults
We are Expecting
Childcare Provider
Emotional Support
Group Facilitator
Jennifer Leath, PsyD
Board of Directors
Joan M. Ashlock
Dr. Mary Zupanc
Co-Owner, Strokes Golf
Jill M. Foster
Cast Member,
Disneyland Resort
Director of the UCI Irvine
Comprehensive Epilepsy
Program
Snyder Langston
Tracy J. Salazar, PhD,
Post-Doctoral Fellow, UCSD;
Research Review Board,
CURE; Professional Advisory
Board, LGS Foundation
Wendy
Crommelin-Tarvin
Jill M. Foster
On-line Support Group for
Parents and Mom’s Night
Out Facilitator
Tracy J. Salazar, PhD
Post-Doctoral Fellow, UCSD;
Research Review Board,
CURE; Professional Advisory
Board, LGS Foundation
Dr. Richard Kim
CEO, Mobile Kitchens USA
Volunteers
Adult Educational Support
Group Facilitators
Division Chief, PSF Neurology
Medical Director, CHOC
& UCI Pediatric Epilepsy
Program
Dr. Mona Sazgar
Jennifer Gunther
Teen Club Facilitator
Jim & Joan M. Ashlock
Advisory Board
Tax ID #27-0681680, a
501(c)(3) Federal Income
Tax Exempt Organization
Medical Director, Hoag
Epilepsy Center, Co-founder
Brain and Spine Surgeons of
Orange County, Co-director
of CHOC’s Epilepsy Center
Phyllis Larkin, PsyD
Individual and Family
Psychotherapy, Private Practice
Contact Us
Tel | 714-916-0456
Fax | 714-916-0456
9114 Adams Ave, #288, Huntington Beach, CA 92646
Website | www.EpilepsySupportNet.org
Email | [email protected]
Janna Moore, Director of Programs presents
Building a Healthy Brain to inform parents.
Our community of support enjoying the
Holiday Social.
Jackie Metcalfe Wilson gets a great big
smile from the kids at the Holiday Social
craft table.
Teens enjoyed a Scavenger Hunt at the
Holiday Social.They got to practice their
social skills by interacting with everyone.