2014 Epilepsy Association Annual Report

The Epilepsy Association
2014 Annual Report
“Beyond the Storm”
Dear Friends,
The Epilepsy Association embarked on an initiative a few years ago directed at the ongoing challenge of raising
awareness of epilepsy—our Mural Project. The idea behind the project was to generate community dialogue
about epilepsy and create a piece of art for the community at large that would provide a glimpse into the life
experiences of those affected by epilepsy. In 2014, our beautiful 8’ high by 48’ wide public mural (Beyond the
Storm) by artist Katherine Chilcote, was completed and hung on the exterior wall of the agency office building
located on Prospect Avenue. The mural represents many voices of those in the community who came together to
describe and develop images that could portray the journey of epilepsy. The imagery for the mural was crafted
around the themes of healing, overcoming difficulty, and hope.
2014 concluded the agency’s 2012-14 strategic plan. We served more people and raised more funds for services
but the challenge of raising awareness of epilepsy within the greater community continues for us. There was an
overwhelming interest from agency staff and the Board of Trustees as we discussed our 2015–17 plans to use the
mural as an important tool to help achieve this end. It is our desire to elevate the utility of the mural and use its
imagery as a vehicle that combines art with education, facilitates dialogue about epilepsy and builds a greater
awareness and understanding of the disorder.
2014 was also the first full year for our Kids and Family program. This service brought us back to our roots by
re-establishing direct services to support parents and kids managing an epilepsy diagnosis. Our P.I.K.E.S. group,
which stands for Parents Inspiring Kids with Epilepsy & Seizure Disorders, is a monthly parent support group
that was established to allow parents to meet others dealing with similar issues—to share hopes, dreams and
struggles and to get and give support to each other. We look forward to seeing this program grow.
The Epilepsy Association is the only community-based provider of social services for adults who have epilepsy
and a mental health diagnosis nationally. In 2014 we recommitted our efforts to providing care to our adult
population in need of specialized case management services. We increased the number of new clients to this
service by 25% over 2013.
Raising awareness and building community is not an easy task to accomplish. Our dedicated and loyal
volunteers were up to the task and through their on-going efforts to help people with seizure disorders; the
Association was able to grow agency programs. We could not be where we are today without the epilepsy
community assisting the agency and each other.
The Epilepsy Association was established more than 40 years ago. Throughout these years we have witnessed
numerous clients and families, exhibit tremendous courage and perseverance in dealing with what epilepsy has
brought to them. We look forward to more years of service in the community as our job is far from complete.
Thank you for your continued support of the agency and our services. We look forward to another exciting year
and we hope you will join us for the next chapter!
Regards,
Peter A. Nelson
Kelley S. Needham
2014
2014 Highlights
What we’ve done
94 Information and
referral calls fielded
128 Parents and Families
Served
341 Individuals received case
management and other adult social services
3,000 social service treatment hours provided
9,566 Individuals reached through community programs
and education
$435,577 Donated through private contributions, grants,
and special events
Epilepsy Association Annual Report
1
About the Epilepsy
Association
Our Mission
and Purpose
The Association was started in the mid1950s by parents of children with epilepsy,
under the name Parents Crusade Against
Epilepsy. It later became the Committee of
Epilepsy of the Family Health Association. In
1972, the Committee on Epilepsy became an
independent agency supported by funding
from the Cuyahoga County United Way
Services.
Mission: For children, adults and families in
Northeast Ohio impacted by epilepsy we will
raise awareness in the community, provide
education, advocacy and direct services that
lead to an increased understanding of the
disorder and to better management of the
condition, resilience, personal fulfillment,
independence and the ability to contribute
meaningfully to the community.
The agency is licensed by the Ohio Department
of Mental Health, is a funded agency of
United Way Services, and is accredited by the
Commission of Accreditation of Rehabilitation
Facilities (CARF). CARF is an international,
independent, nonprofit accreditor of human
service providers, and CARF-accredited service
providers meet the highest national and
international standards of quality. The agency
has held this CARF distinction for 29 years.
Purpose Statement: We believe education
and awareness are imperative to treatment,
acceptance, equitable division of resources
and the inherent right of every individual
impacted by epilepsy to lead a happy, healthy
and productive life.
The staff of 8 professionals, along with many
volunteers, provide the numerous services of
the Epilepsy Association.
The Epilepsy Association is not affiliated with any national organizations. The agency is a designated 501(c)(3) not-for-profit
corporation. As a cost savings measure, the Epilepsy Association shares its office space with the Kidney Foundation of Ohio. All
funds raised by the association stay here in Northeast Ohio providing service in 11 counties which include: Cuyahoga, Geauga,
Lake, Lorain, and parts of Ashland, Ashtabula, Erie, Huron, Medina, Richland, and Trumbull.
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2014
Agency Services Include:
Kids and Family Services
One-on-one Resources—Case Manager meets
with families in their homes or in the community to
assess needs of all family members and connect with
community resources that support the entire family.
Case Manager also provides general support, epilepsy
education, and advocacy.
Epilepsy Education
• Kids on the Block puppet shows for children
preschools: 4th grade
• Youth education: 4th grade–12th grade
• Be Smart Manual: An Epilepsy education manual
designed for school personnel
Support Group for Parents (PIKES)—Parents
Inspiring Kids with Epilepsy and Seizure Disordersmonthly support group that meets at rotating
locations for parents of children with epilepsy.
Adult Social Services:
Mental Health Case Management—mental health
case management for adults who have epilepsy as well
as a mental health condition. Provides individualized
care to best promote health and quality of life for
those served.
Support Groups
• Lake West: Support group that meets monthly for
adults who have epilepsy and their caregivers
• Networking Group: Group that meets twice a year
to facilitate social networking connections for
adults who have epilepsy
Community Service
Information and Referral—Information requests
answered by a licensed social worker to promote
epilepsy education, advocacy, and connections to
appropriate services.
Seminar Series—The Seminar Series is a 4-part
consumer-focused event that addresses issues and
concerns voiced by the agency’s clients and other
individuals affected by epilepsy and their families.
These seminars feature presentations by neurologists
on relevant epilepsy related topics.
Epilepsy Association Annual Report
Public Awareness & Events
• Winter Walk for Epilepsy: Our community event is
held annually at the SouthPark Mall in Strongsville
and gathers over 500 community members, parents
of children with epilepsy, and individuals affected
by epilepsy. The Winter Walk is an indoor, 2-mile
Walk where participants form teams and collect
pledges that support our programs and community
services. Each year, the Winter Walk committee
selects a featured family and highlights their story
as a way to increase awareness about epilepsy
throughout the community.
• Purple Day® March 26: Purple Day® is celebrated in
80 countries; the Global Epilepsy Awareness Day,
or Purple Day®, focuses the world’s attention on
epilepsy. We celebrate Purple Day on March 26 and
raise awareness in NEO by organizing a grass-roots
campaign and supporters host mini-fundraisers
throughout the city with a call to action being wear
purple to show support and help raise epilepsy
awareness.
• eRACE 5K and 1 Mile Race & Family Fun Day:
The eRACE is a family-oriented 5K and one mile
run/walk to benefit the Epilepsy Association. In
conjunction with the road race is our Family Fun
Day. The Family Fun Day is attended by parents
of children with epilepsy and adults with epilepsy
and consists of family-friendly activities allowing
individuals and families to come together for
support, networking, and fun!
• e-racer Charity Running Team: Our e-racer Charity
Running Team is a virtual competition that runners
join and participate in their choice of organized
road-races during our 4-month competition
period. Runners dedicate their racing season to
helping erase the historic stigma related to epilepsy
while soliciting donations to support the Epilepsy
Association. Races can be held anywhere in the
world and are not limited to those in the Cleveland,
Ohio area.
• Reverse Raffle: This is a casual, after-work event
with the opportunity to win a main board prize
and other side board prizes. This event helps raise
money to fund agency programs.
• Annual Gala: This annual event is held in November
as part of the National Epilepsy Awareness
month. The formal evening has over 250 people
in attendance and our Legacy Award is presented
to recognize a person/medical professional and
corporation who make outstanding contributions
in the field of epilepsy.
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Client Achievement Award—Robert Burtin
In June 2014, Robert Burtin received the
client achievement award at the Association’s
Annual Meeting. Robert came to the Epilepsy
Association in January 2013 through our
Information and Referral program and soon
became a client in our Case Management
program. Robert’s epilepsy and mental health
symptoms were creating barriers and increased
challenges in his life and he needed support.
Robert struggled keeping eye contact, finishing
thoughts, and had significant memory
difficulties. His anxiety kept him from doing
daily tasks and having interactions with other
people. He lost the motivation to do things that
he previously loved. His symptoms were so
extreme it caused him to be unable to work.
Despite all his struggles Robert continued to
diligently work with his Epilepsy Association
case manager and quickly began making
process. He was put on appropriate medication
and later was approved to return to work.
Robert was able to obtain and maintain medical
benefits and social security disability benefits.
He has shown great strides in independence
by taking control of his life despite living with
epilepsy and mental health diagnosis.
(l to r) Kathleen Sanniti, 2013 Board President, Robert Burtin,
Kelley Needham CEO
Robert has blossomed in the short time he
has been with the Epilepsy Association. He
is an inspiration and a magnificent example
of what results can come from our Case
Management program.
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2014
Keenan Lawrence Memorial Fund
The Epilepsy Association thanks the donors who supported this memorial fund.
Natalie Beckwith
Rhonda Calloway
Jonnell Carpenter
Ms. Kathryn Cooper
Ms. Marilyn Johns
Mr. Quinton Jones
R.L. Jones
Jason Koci
Mr. & Mrs. Kenneth & Romena Lawrence
Mr. Milton Lawrence
Julliette Saunders
In Memory of Keenan Lawrence
August 13, 1990—January 6, 2014
“We’re not sure how we will ever get over losing
Keenan so early in his life to epilepsy. He worked
hard, overcame so much, and showed great promise.
To make sense of everything we started the Keenan
Lawrence Memorial Fund to help the Epilepsy
Association serve other families like ours cope with
a child’s epilepsy diagnoses.”
Our Family Picture—The Lawrences
Bottom row: Kenneth and Romena Lawrence
Top row left to right: Kenneth Lawrence, II and
Keenan Lawrence
Epilepsy Association Annual Report
5
Donations
Corporate gifts
The Epilepsy Association wishes to thank our corporate sponsors and grant makers for their
gifts and event sponsorships.
$5,000 and up
$999 and under
University Hospitals Lundbeck LLC Daily Legal News
Cyberonics Inc. Dollar Bank Baker & Hostetler, LLP Rainbow Babies & Children’s
Hospital HW&Co. Kidney Foundation of Ohio Simplified Logistics, LLC Jay Auto Group Progressive Insurance Foundation
Associates in Neurology Inc. Sherwin-Williams Company
Brownstone Day School Ancora Advisors Automobile Dealers’ Educational
Assistance
Johnson & Johnson Progressive Chevrolet Company
Rand Group, LLC The Reminger Foundation
Sunnyside Automotive Group Truist UPS United Way Chipotle Mexican Grill Painesville City Local Schools Hyster-Yale Materials Handling Nestle USA Case Western Reserve University
United Way of Greater Stark County Henkel Corporation The Lubrizol Foundation Northern Ohio Medical Specialists TRUIST PWC United Way of Lake County The Bay Ladies Montague Wells Fargo Community Support
Campaign $1,000 to $4,999
Our Children Making Change U.S. Bank Fairmount Santrol Huntington National Bank Forest City Enterprises Anonymous
Zinner & Co. LLP Technical Consumer Products, Inc. Nordson Corporation The Adcom Group CCS Medical, Inc. Skoda, Minotti & Co. Alere Health, LLC Western Reverse Systems
Grant Thornton, LLP
Sunovion Pharmaceuticals Inc. Aero Fluid Products UCB Inc.
Hahn Loeser & Parks LLP Ulmer & Berne LLP Thacker Martinsek, LPA The Lubrizol Corporation DigiTrace a Division of
SleepMed Inc. Akron Children’s Hospital The Cleveland Browns Nurenberg Paris Heller &
McCarthy Co. LPA Studiothink Fidelity Charitable American Greetings Corporation
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YourCause, LLC Trustee for
Price WaterhouseCoopers LLP Luchita’s Mexican Restaurant
The Benevity Community Impact Fund Ohio State, Cleveland Headquarters
ASI International, Ltd.
Ladies Auxiliary Veterans of
Foreign Wars Miller Bearing Company Inc
Order of the Eastern Star West Park
Chapter #427 Frantz Ward LLP American Legion Post 91 Riverside Gables Bed & Breakfast Truist Marriott Hamlet Village in Chagrin Falls The Federal Reserve Bank of Cleveland
Eaton Corporation NAFSC Community
Action Team Nail World Buehler’s Food Markets Inc. St. Augustine Manor Child Enrichment
Center AT&T Foundation Employee Giving
Campaign
Billow Chapter #483 Citizens Bank Foundation Woman of the Moose chapter 642 Worldcom Inc Silicon Valley Community Foundation
JCPenney Corporation Inc.
Employees Engagement Fund
Thanks to Jyll Presley for the layout and design of the annual report and to Daily Legal
News for its printing.
Every effort is made to ensure the accuracy of our donor listings. If a mistake has been made, please call our
development office so we many correct our records.
2014
Donors
The Epilepsy Association wishes to thank all the individuals who supported the agency during
2014. The Epilepsy Association named the giving levels listed below after writers, artists and
composers who had epilepsy.
The Leo Tolstoy Society
($100 to $249)
Mr. & Mrs. Mike Abbamonte
Mr. Albert Adams
Ms. Lilly Anitas
Mr. Roger Avakian
Ms. Denice R. Baldanza
Mr. Ben Barnes
Mr. & Mrs. James Bell
Mark Bej, MD
Mr. Brad Bellomo
Mr. Brian Bellomo
Mr. Domenic Bellomo
Mr. & Mrs. Stephen Bergman
Mr. Jerry Bird
Mr. & Mrs. Marc Bloch
Mr. & Mrs. Alan and Therese Blumenthal
Ms. Mary Jane Borden
Ms. Allison Botros
Christina Brown
Teresa Buckley
Mr. & Mrs. Ken Burns
Paul Butrey
Mr. & Mrs. Daniel and Tricia Calloway
Harold Cash
Anne Chambers
Dr. & Mrs. Krishan Chandar
Charlton-Shirer Family
Mr. Ronald Chidsey
Mr. & Mrs. Homer and Gertrude Chisholm
Mr. & Mrs. Charles Ciuni
Tiffany Coffman
Dr. Bruce Cohen
Dr. Marcia Columbro
Amy Dan
Mr. & Mrs. John F. Day
Mr. & Mrs. Brad Demsey
Mr. & Mrs. Zvonko Devcic
Mr. Rolland Dillon
Ms. Carrie Domonkos
Ms. Ann S. Dowdell
Cheryl Drake
Mr. Brian Durdle
Jonathan Elsner
Ms. Kathy Fenix
Ms. Ashley Fisher
V. Foster
Brian Gardener
Laurie Gentz
Lori Geyer
Mr. & Mrs. Paul Giammarco
M. Colette Gibbons
Mr. & Mrs. Jeremy and Aimee Gilman
Mr. & Mrs. Paul Glammarco
Mark Hamm
Dan Harb
Mr. & Mrs. Jeffery Hastings
Ms. Katie Hastings
Frank and Jean Hejl
Mr. Michael Hennenberg, Esq
Mr. & Mrs. Richard Herrin
Susan Hirz
Ms. Judith Horn
Joseph Horvath
Mr. Steve Hronek
Kelly Hudson
Mrs. Helen Ingram
Suzanne Jambe
Mr. Bryan & Jeanne James
Ms. Carol Johnson
Mr. & Mrs. Tj Johnson
Rachel Kabb-Effron
Mr. & Mrs. Lucien Karlovec
Ms. June Kasidonis
Ms. Erica Kathryn
Roland Kato
Ms. Fran Kaufman
Greg and Nancy Castrigano
Mr. & Mrs. Robert Klaus
Mrs. Christine Kloss
Jack Kluznik
Richard Koblentz
James and Abby Koehler
Ms. Mindy Kosmin
Nancy Kosmin
Mr. Steven Kost
Mr. Gerrit C. Kuechle
Connie Kupferschmidt
George Landon
Mr. Bruce Lang
Mr. Angelo Laperna
Mr. & Mrs. Kenneth & Romena Lawrence
Mike Lee
Natalie Lichtman
Dana Lusardo
Diane Mackin
Mr. Kevin & Becky Mackrell
Ms. Barbara Madigan
Ms. Lisa Mamone
Julie Mangini
David Marino
Diana Marsich
Ms. Kathryn Martin
Ms. Lindsay Massau
Debra McClave
Ms. Vera McGlone
Ms. Mary McPolin
Grandma and Papa Meyers
Mr. Kenneth Moore
Joan Mullen
Ms. Beth Ann Myers
Ms. Jessica Myers
Hal Nathan
Ms. Karen Nelsen
Wooster Noon Lions Club
Dr. Chinasa Nwankwo
Gerald Oflanagan
Ms. Nikki Pankow
Trudy and Patrick Pauken
Mr. Jeremy Peyton
Mr. Jason Price
Mr. Joe Puchan
Devon and Mark Racz
Mr. Mark Rasnick
Mr. David Roche
Mr. John Rogers, ESQ
Mr. Ed Rogowski
Gary Roll
Mr. Jeff Rosengard
Ms. Cortney Ruggeri
Kathleen Ryan
Dr. Amila Sahram
Dr. Martha Sajatovic
Ms. Allegra Sanders
Mr. Craig Sanders
Charlie and Cathy Savage
Ms. Ruth Scholtz
Mr. Jason Schreck
Keli Schubert
Mr. Robert See
Ms. Andrea Segedi
Stewart J. Sharpe
Every effort is made to ensure the accuracy of our donor listings. If a mistake has been made, please call our development office so we many correct our records.
Epilepsy Association Annual Report
7
Donors
The Epilepsy Association wishes to thank all the individuals who supported the agency during
2014. The Epilepsy Association named the giving levels listed below after writers, artists and
composers who had epilepsy.
The Leo Tolstoy Society
($100 to $249) continued
Mr. James Shaw
Mary Shaw
Ms. Stefanie Shein
Mr. Robert Slepecky Jr.
Gloria Smith
Mr. Jamey Snodgrass
Mr. Rick Sobotka
Ronald Solt
Chris Spirnak
Mary Stergiou
Mr. David J. Strauss
Ms. Michelle Sweetland
Mr. Jopseph Thacker
Mr. Dennis Thatcher
Mr. & Mrs. Joseph H. Thomas
Steve Thornton
Tom Tucker
Heineken USA
Jason Veloso
Mr. & Mrs. Robert Vilcheck
Mr. Samuel Webb
Marilyn Wesel
Diane Wilcox
Mr. Michael Wilemaitis
Dr. Elaine Wyllie
Mr. Gerald Zahler
Mr. Matthew Zajac
Mr. Adam Zuccaro
The Lord Byron Society
($250 to $499)
Mr. & Mrs. Paul Apostle
Mr. Anthony Biasiotta
Mr. Michael Blake
Ms. Roberta E. Brown
Mr. & Mrs. Darren Clemente
Frank Costanzo
Mr. Thomas Delaney
Timothy Eippert
Mr. Evan Fineberg
Jill Fitch
Ms. Loretta Flynn
Mr. & Mrs. Jerry Frebes
Dale and Hollis Friedland
Kevin and Pamela Steurer
Mr. & Mrs. Jerry and Laurie Gentz
Ms. Amy Georgalis
Ms. Cheryl Diane Gregerson
Mr. Zachary Guzy
Mr. & Mrs. Tom Johnson
Mr. Michael Keiper
Lynn Kennedy
Ms. Susan Krantz
Mr. Timothy Lahey
Ms. Lucinda Lavelli
Bill Leahy
Mr. & Mrs. William Leahy
Ms. Christine Lobas
Mr. & Mrs. Ben and Courtney Maibach
Mr. & Mrs. John Metzger
Mr. Sam Misseri
Mr. Kevin Moore
Ms. Stephanie Moore
Mr. James Negrelli
Mr. & Mrs. William Roddy
Mrs. Catherine Rutti
Chris Samstag
Mrs. Paula M. Sauer
Ms. Justina Saxby
Ms. Lisa Schechter
Mr. & Mrs. Gerald and Suzanne Schroer
Mr. Mike Shay
Dr. Ingrid Tuxhorn
Mr. & Mrs. Michael Voll
Mr. Richard Walinski
Mrs. April Walsh
Ms. Heather Zachariah
The George Frederick Handel Society
($500 to $999)
Ms. Jennifer Baus
Mr. & Mrs. Richard Beyer
Mr. & Mrs. Charlie and Grosvie Cooley
Mr. Larry Friedman
Mr. Neil Gurney
Mr. Ray Haseley
Mr. Alan Hirth
Mr. & Mrs. Mark Holcomb
Ms. Elaine Hutchins Baker Hostetler
Mike and Robin Kane Family
Mr. Brandon Kapan
Ms. Stephanie Kapcio
Mr. Eric Kennedy
Mr. Robert Landon
Dr. Jonathan Miller
Mr. Vincent Mottolo
Mr. & Mrs. Michael F. Needham
Mr. Peter Nelson
Mr. & Mrs. Gene Novak
Robert Palame
Mr. & Mrs. Ryan Routh
Mr. James Smith
Dr. Norman So
Mr. & Mrs. James D. Wilson
Mr. & Mrs. Zeeland
The Charles Dickens Society
($1,000 and above)
Mr. & Mrs. Harold Babbit
Mr. & Mrs Richard Bass
Mr. Michael Battaglia
Mr. & Mrs. James R. Bavis
Ms. Jennifer Carlile
Mr. & Mrs. Gerald Chalfin
Mr. & Mrs. Lee and Tuni Chilcote
Mr. Chad Davies
Dr. & Mrs. Michael Devereaux
Mr. Alan Gendler
Ms. Debra Horn
Karen Ben and Johnson Family
Mr. & Mrs. Jeffrey Karlovec
Ms. Amy Kellogg
Mrs. Joy W. Lavelli
Mr. & Mrs. Rob & Holley Martens
Mrs. Cynthia McHugh
Mr. E. Sean Medina
Mr. Mark Nuss
Mr. & Mrs. Dave and Karen Perkowski
Mr. Philip Richter
Ms. Marquettes Robinson
Dr. Robert E. Rzewnicki
Mr. & Mrs. Daniel Schmidt
Dr. & Mrs. J. Patrick Spirnak
Dr. Susan Stagno
Ms. Rosemarly Zang
Every effort is made to ensure the accuracy of our donor listings. If a mistake has been made, please call our development office so we many correct our records.
8
2014
Donations
Foundation Gifts
Dollar Bank Foundation
Grant support for the President’s Luncheon: A donor cultivation event
William J. & Dorothy K.O'Neill Foundation
Grant support for the “Kids and Family Program”
Ridgecliff Foundation
Grant support for the “Proactive Skill-Building Program”
Ronald McDonald House Charities of NE Ohio
Grant support for “Youth Epilepsy Education”
U.S. Bank Foundation
Grant support for Economic Opportunity, employment, and training
United Black Fund of Greater Cleveland
Grant support for the “Proactive Skill-Building Program”
Matching Gifts
Citizens Bank Foundation
Dollar Bank Foundation
GE Foundation
Hyster-Yale Materials Handling
Johnson & Johnson
KeyBank Foundation
Nestle USA
The Progressive Insurance Foundation
Sherwin-Williams Company
Epilepsy Association Annual Report
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Contributions through United Way of Greater Cleveland
The Epilepsy Association thanks all the generous contributors who designated their
gift through the United Way Campaign.
Barbara Alliance
Robert Antonelli
Charlotte Basel
Eva Basquez
Michael Bertsch
Margaret Bewie
Anthony Biasiotta
Katie Blume
Thomas Boltja
Sharon Bradley
Genesis Brown
Patricia Chevrolet
Laura Conway
Stephen Coolbaugh
Deac DeCamp
Mark Devcic
Mary Dyczek
Daniel Enovitch
Rita Enovitch
Gordon Etchison
Robert Felty
Carolyn Fender
Bruce Ferraro
Joel Forquer
Johanna. Frebes
Irene Frye
Wanda Good
Anthony Griffin
Megan Grodek
Sharron Gustavson
John Haight
Martin Hauserman
Mary Havanas
Brian Hirko
Kristy Hogue
Brenda Houry
Gregory Jelinek
Anna Johnson
Jeffrey Jones
Amy Kellogg
Brian Kimball
Mark Knapp
Pamela Lang
Cynthia Lehman
Laura Lennerth
Holly Lewis
Hans Luders
Ronald Maichle
Bryan Maikut
Thomas Maiolo
Kimberly McGreal
Diana Meaney
John Metzger
Melissa Molina
Jeanmarie Moore
Kelley Needham
Laura Nelson
Peter Nelson
Mirjana Novakovic
Tiffany Perry
Jim Petsock
Christine Pfeifer
Lorie Porcher
William Pordan
Luz Reyes
Jodi Rich
Marquettes Robinson
Jeffrey Rosengard
Catherine Rutti
Laura Samsa
Kathleen Sanniti
Colleen Saunier
Peter Schmeida
Gayle Schmuhl
Andrea Segedi
Deanne Sikora
Eleeshia Simmons
Michael Slama
Susan Stagno
Julie Staveski
Connie Taylor
Sharon Ungar
Alicia Vandenk
Pamela Wall
April Walsh
Linda Ware
Tracey White
Russell Williams
Nicole Winkelman
Lacey Wood
Listing supplied from United Way of Greater Cleveland. If you name is not
listed, please call our development office at 216.579.1330.
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2014
Our Supporters
2014 Board of Trustees
Peter Nelson, President
Jeffrey B. Karlovec, Vice President
James J. Smith, Treasurer
Debra J. Horn, Secretary
Kathleen J. Sanniti, President,
Immediate Past President**
Rabon Allen
Richard Bass
Mark Bej, MD
Anthony D. Biasiotta
Michael Blake
Jennifer Carlile
Chad Davies
Zachary A. Guzy
Ray Haseley
Lara Jehi, MD
2014 Officers:
(l to r) Jeffrey Karlovec, Vice President, Debra Horn, Secretary;
Peter Nelson, President; James Smith, Treasurer
Karen P. Johnson
Robin J. Kane
Amy E. Kellogg
Susan D. Krantz
Valentino Lassiter, DDiv
Christine A. Lobas
Bill Martin
E. Sean Medina
Cynthia McHugh
Jonathan P. Miller, MD
Maureen M. Morreale
Jason Price
Mark Nuss
Marquettes D. Robinson
William P. Roddy
Norman So, MD
Susan Stagno, MD
Catherine Rutti*
Mark S. Scher, MD*
April Kingsbury Walsh*
*indicates term ending in 2014
2014 Professional Advisory Board
Norman So, MD Co-Chair
Susan Stagno, MD Co-Chair
Peter Bambakidis, MD
Marcia Columbro, MD
Michael Devereaux, MD
Thomas Enlow, MD
Nancy Foldvary-Schaefer, DO
Ajay Gupta, MD
Prakash Kotagal, MD
Pamela A. Lang, MS, RN
Kim Merner, MSN
Imad M. Najm, MD
Mark S. Scher, MD
Tanvir U. Syed, MD
Ingrid Tuxhorn, MD
2014 Staff Listing
Partnerships
Kelley S. Needham—CEO
Lacey Wood—Director of Community Programming
Colleen Saunier—Director of Special Events
Andrea Segedi—Director of Special Gifts and IT
Anthony Griffin—Lead CPST Worker
Linda Ware—CPST Worker
Nicole Richter—CPST Worker
N. Susan Wertenberger—Administrative Assistant
ADAMHS Board of Cuyahoga County
United Way of Greater Cleveland
CARF-Accredited
Licensed by the Ohio Department of Mental Health
and Addiction Services
Epilepsy Association Annual Report
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Financials
Support and Revenue:
2014 Audited
2013 Audited
Contributions
$157,956 $196,687
Program services fees
$236,875 $228,459
Special events
$277,621 $225,779
Less: Direct benefit to donor
($69,252)
($69,256)
Net gain on investments
$35,811 $96,034
Miscellaneous
$1,851 $2,646
Total Support and Revenue
$640,862 $680,349
Expenses:
Program services
Community services
Patient services
Public health education
Bad debts
Supporting services
Management and General
Fundraising
Total Support Service
Total Expenses
Change in net Assets
Net Assets—Beginning of Year
Net Assets—End of Year
2014 Use of Funds
$57,512 $402,569 $115,019 $32,503 $607,603 $55,322
$387,227
$110,635
$13,155
$566,339
$26,477 $64,818 $91,295 $25,466
$62,349
$87,815
$698,898 $654,154
($58,036 )
$969,397 $911,361 $26,195
$943,202
$969,397
2014 Revenue Sources
Program Service Fees
Patient Services
5%
14%
9%
17%
Epilepsy Awareness Education
Contributions
Individual and Family Support
Special Events
Supporting Services
37%
33%
Investment Income
and Miscellaneous
60%
25%
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2014 independent audit performed by Howard Wershbale & Co.
2014
The Epilepsy Association Mural Project
“Beyond the Storm”
by artist Katherine Chilcote
A community art project to build a common dialogue of hope and healing. This Project allowed us
to tell our story, generate awareness, secure resources and revitalize a neighborhood. The mural is
located at the Epilepsy Association Office at 2831 Prospect Avenue, Cleveland, Ohio 44115.
The following individuals/foundations contributed to the Project and we are so very grateful
for their support.
The Char and Chuck Fowler Family Foundation
Amy E. Kellogg
Frank H. Porter Jr.
J. Patrick and Diane Spirnak
Tuni and Lee Chilcote
Kathy and James Pender
Reginald and Lynn Shiverick
Medical Mutual
Kitt and Mark Holcomb
Paula Sauer
Supported by:
Epilepsy Association Annual Report
13
The Epilepsy Association
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