Spring 2014 MS Connection - National Multiple Sclerosis Society

Transcription

Spring 2014 MS Connection - National Multiple Sclerosis Society
Who Do You
Walk For?
Inspire others at Walk MS
MS Connection is a
quarterly publication
of the National Multiple
Sclerosis SocietyWisconsin Chapter.
National Multiple Sclerosis Society-Wisconsin Chapter
Board of Trustees
National MS SocietyWisconsin Chapter
1120 James Drive
Suite A
Hartland, WI 53029
262-369-4400
800-242-3358
David Rodgers, Chair
Briggs & Stratton Corporation
Michael Lutze, Vice Chair
Ernst & Young
Tom Golden, Vice Chair
M3 Insurance Solutions, Inc.
TOLL FREE
Pamela Evason, Vice Chair
Windermere Wealth Advisors, LLC
www.wisMS.org
James Rose, Treasurer
Baker Tilly Virchow Krause, LLP
Robert Sowinski, Secretary
Diversified Insurance Solutions
Kenneth Minor, Past Chair
Sonic Foundry, Inc.
Editor:
Amanda Gasper Krueger
Content Editor:
Maureen Waslicki
Graphic Design and
Production:
Amy Malo and Joan Hartin
To comment or share
a story idea, call
262-369-4421 or email
[email protected]
©2
014 National Multiple Sclerosis
Society-Wisconsin Chapter
MS Connection | 2
Colleen Kalt, President & CEO
National MS SocietyWisconsin Chapter
Anne Brouwer
McMillianDoolittle, LLP
Dennis Christiansen
Secured Retirement Strategies
Group, LLC
Robert Engel
Retired, M&I Bank
Paul Jones
Harley-Davidson, Inc.
Rev. James Kaestner
Retired
Wayne Larsen
Ladish Company Foundation
Martin McLaughlin
Reinhart Boerner Van Deuren, s.c.
David Raysich
Plunkett Raysich Architects
Jeffrey Steren
Steren Management/McDonald’s
Robyn Turtenwald
Community Advocate
Robert Buhler
Open Pantry Food Marts of
Wisconsin, Inc.
If you or someone you know has MS: Studies show that early and ongoing treatment with an FDA-approved
therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis.
Talk to your health care professional or contact the National MS Society at nationalmssociety.org or
1-800-344-4867 to learn about ways to help manage multiple sclerosis and about current research that
may one day reveal a cure. The National MS Society does not endorse products, services or manufacturers.
Such names appear here solely because they are considered valuable information. The National MS Society
assumes no liability for the use of contents of any product or service mentioned. Information provided by the
Society is based upon professional advice, published, experience and expert opinion. Information provided
in response to questions does not constitute therapeutic recommendations or prescriptions. The National
MS Society recommends that all questions and information be discussed with a personal physician.
The National MS Society is committed to seeing a world free of MS.
“My mom.”
“My wife.”
“My son.”
“Myself.”
Who Do You Walk For?
That’s a question I ask every year when I meet people at Walk MS. It’s a simple question, and it generates
powerful answers.
Those words, though few, demonstrate the power that comes with being involved in Walk MS. It’s where
those who love someone with MS can show their support, and where people diagnosed with MS inspire
others with the dignity and strength they show in how they choose to live with the disease.
Angela Docherty is one of them. She walks for herself and for her sister (both were diagnosed in their
20s). But as you’ll read in this edition of MS Connection, Angela also walks for you. She’s one of the
hundreds of heroes who are diagnosed with multiple sclerosis and come to Walk MS each year where
they inspire their friends, their family and even strangers.
This year we’ll be celebrating their contributions by wrapping those heroes in orange, the color of the MS
Movement, starting with an orange “I Walk with MS” T-shirt. Other tributes are also being planned by
each walk site’s volunteer committee (if you’d like to help, call us). It’s our way of honoring Angela and
everyone like her for their courage, strength, determination and inspiration.
I hope you’ll join us.
Colleen G. Kalt
President & CEO
P.S. That beauty on the cover is Angela’s daughter. Angela walks for her, too, so she might only remember MS as the
disease her mom and aunt had, but that her family helped cure.
Go to walkMSwisconsin.org or call 262-369-4400 to register.
MS Connection | 3
Wisconsin’s Tax Check-off Program
Changes could erase $75,000 in financial assistance for those with MS
W
isconsin’s tax check-off program gives
taxpayers the opportunity to make
donations through their state income tax
forms to support a variety of causes ranging
from endangered
resources to hunger
relief. Multiple sclerosis
was added to the list
of options in 2005 and
since then has helped those diagnosed with
MS improve their quality of life and maintain
their independence. However, new legislative
changes to the tax check-off program threaten
the ability to keep this vital resource available
for Wisconsinites affected by the disease.
Rick Olin, fiscal analyst for the non-partisan
Wisconsin Legislative Fiscal Bureau, provides
answers about the future of the program.
Q: What is the income tax check-off program?
A: Wisconsin taxpayers may make donations for
a variety of specified purposes through checkoff procedures on state individual income tax
forms. From 1983 through 2000, there was a
single option for making charitable donations
along with filing the individual income tax in the
form of a check-off for endangered resources.
Starting in 2001, a check-off was added for
donations for the operation and maintenance
of Lambeau Field in Green Bay, and since then,
nine additional check-offs have been created.
Q: What are the new standards regarding
the program?
A: In response to the increasing number of
check-offs, 2011 Wisconsin Act 222 combined
the breast cancer research check-off and the
prostate cancer research check-off into a single
check-off for cancer research. In addition, the
Act established a procedure for limiting the
number of check-offs in any tax year to 10.
Total dollars received
for those with MS through the Tax Check-off Program
Annual donations to MS
through the tax check-off
program need to return
to $75,000 or more or
else the Society will be
dropped from the program
$95,000
$90,000
$85,000
$80,000
$75,000
$70,000
2007
2008
2009
2010
2011
2012
Visit www.wisMS.org or call 800-242-3358 for more information.
MS Connection | 4
2013
Under the procedure, the least used check-offs
would temporarily rotate off the form if more
than 10 check-offs have been created.
The 2013-15 biennial budget act, 2013
Wisconsin Act 20, changed the check-off
program so that any income tax check-off
that does not generate at least $75,000 in a
year would be permanently removed from the
state’s income tax forms.
Q: Why are the standards changing?
A: Act 20 made a number of changes to the
state individual income tax. Some of the
changes sought to simplify the administration
of the tax by shortening the tax form. It is not
possible to ascribe an intent to the check-off
change, but reducing the number of income
tax check-offs would shorten the tax form and
simplify the administration of the tax checkoff program donations.
“… Wisconsin Act 20, changed the
check-off program so that any
income tax check-off that does not
generate at least $75,000 in a year
would be permanently removed
from the state’s income tax forms.”
- Rick Olin, fiscal analyst
Wisconsin Legislative Fiscal Bureau
Q: Is it possible they will change again?
A: The check-offs reflect provisions in state law.
Another law change, like the one in Act 20,
could change the standard again.
Q: When do the new standards go into effect?
A: Tax year 2015 is the first year that any checkoff would be eliminated. The determination
will be based on check-off amounts for tax year
2014 (tax returns due by April 15, 2015).
How You Can Help
Mark on your state income tax form that
you want to make a donation for multiple
sclerosis, then designate the amount you
want to give. Ask everyone you know to
do the same. Do it this year, next year
and beyond.
2013
Form
1A
Nam
e
25 Fi
ll in ne
t tax
26 S
from
line 24
ales
an
....
d us
If you
....
certify e tax du
....
27 D
that no e on In
....
onatio
....
sales ternet,
ns (d
SSN
....
m
ecreas
or us
....
a End
e tax ail order,
es re
....
ange
or
is du
fund
....
red re
e, ch other ou
or
....
b Pac
increa
source
eck he
t....
kers
se
s
re . . of-state pu
....
s
amou
footba
....
....
rchase
c Can
nt ow
ll stad
. . 25
.
.
s
....
ed)
.00
cer re
ium
. . . . (see page
search
f Fire
....
d Ve
....
. . . . 15) 26
fighter
terans
.00
.
s mem
trust
g Mili
e Mul
fund
or
ia
ta
l
....
.00
tiple
ry fam
....
sclero
..
ily re
h Se
sis .
lief .
cond
....
....
.00
Harve
.00
...
28 A
st /Fee
i Red
dd lin
ding Am
Cross
.00
es 25
.00
er.
WI D
29 W
,
26
j
is
S
,
iscons
aster
pecial
and 27
Relie
in inco
Olym
k ..
.0
30 20
0
f
pics
....
me ta
13 es
....
....
x with
timat
31 E
....
....
.00
held.
Total
ed ta
.
....
arne
Enclo
(add
x paym
....
lines
se w
Qualif d income
....
ents
.00
ithho
a thro
credit
....
and am
lding
child ying
ugh j)
....
(see
statem
ren
....
..
32 H
Fede page 16 ount appl
ents
....
27k
ral
ied fro
omes
)
.
.
.
.
.
.
cr
.
.
te
m 20
edit .
. . 29
....
ad cr
33 E
12 re
. . . 28
..
edit.
ligible
turn
Attach
. . . 30
vetera
Sched
34 A
ns an
ule H
.00
dd lin
.00
d surv
or H-E
es 29
x
iving
Z ..
35 If
throug
spou
....
% =
.00
line 34
ses pr
h 33
....
. . . 31
operty
....
is mor
....
36 A
....
e than
....
tax cr
mount
....
. 32
edit (s
lin
.
e
.
of lin
28, su
....
ee pa
37 A
e 35
ge 17
....
btract
.00
mount
you w
) 33
....
line 28
of lin
ant R
....
38 If
from
e 35
....
EFUN
.00
line 34
line 34
you w
....
DED
ant ap
....
. This
is less
TO Y
39 U
....
is the
plied
.00
OU .
than
nderpa
.
A
.
to
lin
M
.
.
....
....
OUN
e 28,
your
(See
ym
T YO
. 34
....
page ent inte
subtra
2014
U OVE
....
19)
estim
rest.
ct line
Third
....
RPA
Fill in
ated
34 fro
ID 35
....
Do yo
exce
tax .
m lin
....
u wa
Party
ption
....
e 28.
nt to
....
37
code
allow
This
....
Desig
anothe
– See
is the
36
De
r
person
Sch.
nee
AMO
sig
U 
UNT
to disc
name nee’s
YOU
Sign
uss th
.00
OWE
is retu
belo
39
rn wi
Your
. . 38
w
th the
signa
Un
2013
Wisc
ons
in INCO
ME T
ax F
orm
ture
Mail
your
return
der pe
Marr
1 W
ied C
ages
ouple
line 1 , salarie
s,
(
Cred
......
cla
or no
scho of Form 1A tips, an
tax du imed ...... . PO Box
)
it Wh
d
larshi
...
e ......
268,
ps an . Do not other em
2 IR
en B
Madiso
......... .. PO Box
pl
d fello
includ
A dedu
..... PO
34
n
oth S
wship
e defeoyee com
Box 59 , Madison WI 53790ction,
3 Sub
pous
s
W
00
, Mad
that ar rred co pensat
if any,
tra
ison I 53786-00 01
es A
mpens ion fro
e not
from
WI 53
4 Com ct line 2
re
m
line 8
reporte
atio
785-00 01
from
Emp
(A) YO
pa
of Fo
01
d on n or
line 1
loyed
smal re amou
rm 1A
URSE
a W-2
....
ler am
nt
LF
....
....
.
5 Rat
.
ount s in colu
.. 1
....
....
m
here.
e of cr
....
....
(B) YO
If mor ns (A) an
6 M
edit is
....
....
UR SP
d (B
ultip
e than
. 2
.0
.
OUSE
$16,00 ) of line 3. . . . . . . .
of Fo ly line 4 by 3 (3%) . .
...
.00
rm 1A
..
0, fill
Fi
3
in $1 ll in the
. . . . line 5. Rou . . . . . . .
6,000
....
....
nd
.0
0
th
.
....
....
. . . . e result an . . . . . . .
....
.
....
....
.00
.00
. . . . d fill in he . . . . . . .
....
....
....
... 4
....
. . . D re and on
.00
....
o NO
.. 5
T fill line 22
in
.0
.00
.00
.00
more
than
$480
X
6
.00
No
f.
0
.00
.03
.00
C
For De
partm
ent Us
e On
ly
Q: Overall, contributions through the
check-offs appear to be decreasing.
Why do you think this is happening?
A: Since 2001, total check-off amounts have
increased in some years and decreased in other
years. Amounts increased in tax years 2009
and 2010, decreased in tax year 2011, and
increased in tax year 2012. Relative to tax year
2011, amounts increased for the endangered
resources and Second Harvest programs,
and decreases occurred for six of the other
programs. Introduction of the new check-off
for Special Olympics in 2012 contributed to the
overall increase in check-off amounts for that
year. It is possible that “new” check-offs divert
contributions to previously existing check-offs.
MS Connection | 5
AS;
Page
2 of 2
NO C
ENTS
.00
.00
rtmen
t (see
.00
page
Phon
19)?
clare
no. e
that th
Spou
is retu
(
Yes
se’s
rn an
)
Com
signa
d all
Pers
plete
ture (if
attach
onal
Wisc
the fo
filing
m
id
onsin
ents
llowing
entifi
jointly,
are tru
Depa
.
numbe cation
BOTH
rtmen
e, co
r (PIN
must
rrect,
t of Re
sign)
and co
)
venu
mple
e
te to
Date
the be
If tax
st of
du
my kn
If hom e ............
Da
ow
ytime
ledge
...
es
If refu tead cred ...............
phon
and be
e
nd
...
it
lie
s of law
, I de
OMM
.00
.00
depa
naltie
to:
NO C
An Oral Treatment Option for Relapsing
Forms of Multiple Sclerosis (MS)
Informative events for people living with MS and
their caregivers.
Wednesday, May 21, 2014 at 6:00 p.m.
Michael Connor, DO, Medical Director, MS Clinic
Maggiano’s Little Italy
2500 North Mayfair Road
Wauwatosa, WI 53226
Event code: TR244693 (1127128)
MS.US.PO1497.0313
Thursday, May 29, 2014 at 6:00 p.m.
Bhupendra Khatri, M.D., Center for Neurological Disorders
El Fuego
909 West Layton Avenue
Milwaukee, WI 53221
Event code: TR243878 (1125867) MS.US.PO1497.0313
Wednesday, June 18, 2014 at 12:00 p.m.
Bhupendra Khatri, M.D., Center for Neurological Disorders
Bonefish Grill
18355 West Bluemound Road
Brookfield, WI 53005
Event code: TR243881 (1125868) MS.US.PO1497.0313
Wednesday, June 25, 2014 at 6:00 p.m.
Cheryl Blaschuk, NP, MS Certified Nurse
HobNob
277 South Sheridan Road
Racine, WI 53403
Event code: TR244357 (1125497)
MS.US.PO1497.0313
Space is limited. A light meal will be served.
To RSVP, please call 1-866-703-6293 or e-mail [email protected]
PAID ADVERTISEMENT
MS Connection | 6
Bridging the Gap Between Research and Treatments
Society’s Fast Forward program supports local study
T
here is often a need in research to
bridge the gap between promising
discoveries and actual treatments. It can take
a new therapy at least 15 years and billions
of dollars to come to market. That is where
the Society’s Fast Forward
program comes in.
Founded in 2007, Fast
Forward is a commercial
research arm of the
National Multiple Sclerosis
Society that contributes
to Society efforts to speed
treatments to people with
MS. It does so by providing
funding for emerging biotechnology and
pharmaceutical companies and academic
groups to further develop their research.
Through Fast Forward, the Society invests
in a multitude of companies, including a
recent $225,000 commitment to ENDECE,
a biotechnology company in Mequon, Wis.
ENDECE is pursuing the development of
NDC-1308, a chemical compound similar
to the sex hormone estradiol. They have
preliminary evidence that a two-week treatment
with NDC-1308 led to a significant increase
in the number of immature and mature,
myelin-forming cells in an animal model
with myelin damage. In the laboratory, they
also found that NDC-1308 promotes myelin
formation around rodent nerve fibers.
Now they are confirming these findings in
mice and conducting further research to
optimize the dose.
This study may help speed a promising
new treatment option forward, one with
the potential to be developed into a therapy
to restore function in people with MS.
For more information about the Society’s
research efforts, visit fastforward.org.
Success Stories
Initial funding in emerging biotechnology companies by the National MS Society through Fast Forward
has led other investors to provide funding and is helping move treatments through the drug development
pathway more quickly, including clinical trials. In addition to ENDECE (noted above), a few examples include:
• Apitope International – The Society invested $1 million in Apitope to support an early stage trial
for a treatment for relapsing-remitting MS. Since then, the company has entered into a $200 million
agreement with pharmaceutical company Merck Serono for further development of the therapy.
• Canbex Therapeutics – The Society provided funding for the development of Canbex Therapeutics
treatment for spasticity in MS. After this initial investment, Canbex has received $2.8 million from
charitable foundation Wellcome Trust and $3.2 million from Merck Serono Ventures and is starting
a Phase 1 trial.
• DioGenix – The Society funded DioGenix with $479,000 for the development of a blood-based
diagnostic test for MS, which would aid physicians in a clinical diagnosis and monitoring of MS.
Since then, the company has received $1.5 million in financing from investors.
MS Connection | 7
How We Move It
Wisconsin Chapter News and Notes
More than 250 people connected with each other and MS experts at the 2014 MS Summit on March 15.
The day included presentations on MS research, treatment and adaptive exercise along with tips on
wellness and lifestyle. An on-site photo booth gave participants the chance to have some fun with
MS-awareness-themed props.
Applications Available for
MS Youth Camp
Applications are now being accepted for
MS Youth Camp, June 16–21 at YMCA Camp
Icaghowan in
Amery, Wis. Youth
Camp is a great way
for young people
(third grade/age
9 through 18) who
have a parent with
MS, or who live in
a household with
a person who has
MS, to have fun
with others their
age whose world
is impacted by the
disease. Visit www.wisMS.org or contact Krista
at 612-335-7937 or [email protected]
for details. April 30 is the application deadline.
MS Connection | 8
Online Support is Available
The National MS Society recently expanded
MSconnection.org to include online support
groups so that everyone with MS, especially those
who are isolated due to location or severity of
their MS, can connect and find support. Some
groups are even set up based on specific aspects
of MS such as “Newly Diagnosed,” “Young
Adults” and “Carepartners.” Learn more at
MSconnection.org or visit www.wisMS.org to
find an in-person self-help group in your area.
Race to Finish MS
Finish MS is a new program that offers runners,
cyclists, swimmers and other athletes the tools
to turn any endurance event into a fundraiser
for multiple sclerosis. Participants can receive
a Finish MS singlet with a $100 minimum
fundraising pledge.
For details, contact Kristin Raeber at
[email protected] or 262-369-4436
with questions.
Free Teleconference Series
April 14: Sharing Your Diagnosis
with Friends/Family
May 12: Managing Bowel and
Bladder Issues
June 9: Progressive MS Research
July 14: Emerging Therapies
August 11: Practical Nutrition for
People with MS
September 8: Financial Planning for a
Future with MS
Each teleconference is one hour and begins at
7 p.m. CDT. To register and receive call-in details
for the teleconference, visit MSsociety.org or
call 800-344-4867 (option 1).
The West Salem High School Student Council
raised $1,000 for MS.
Unique ways of giving
• The West Salem High School Student
Council organized a run/walk benefit, a pancake
breakfast and a silent auction to raise funds for
the National MS Society-Wisconsin Chapter.
Proceeds (along with extra money from their
Student Counsel account) added up to a
$1,000 donation. A few students know people
impacted by the disease, making the gift even
more meaningful.
•
Each year Ripon Printers sends holiday
cards to customers and offers to
make a donation in the customer’s
name to one of six charitable
4
organizations. Employee Carol
1
20
Cluppert explained that a former
employee had been diagnosed
with the disease. More than 40
clients chose a donation to the
National MS Society for a total
of $175.
S
ry
S
y
S
JanuarT F S4
W
3
M T
1 2 10 11
9
18
7 8 16 17 25
5 6 14 15 23 24
12 13 21 22 30 31
19 20 28 29
26 27
S
Februa T F S1
W
8
M T
6 7 15
4 5 13 14 22
2 3 11 12 20 21
9 10 18 19 27 28
16 17 25 26
23 24
ust
Aug
S
S
July
T F
W
4 5
M T 2 3 11 12
1
10
19
8 9 17 18 26
6 7 15 16 24 25
13 14 22 23 31
20 21 29 30
27 28
r
S
OctobeT F S4
W
3
M T 1 2 10 11
9
18
7 8 16 17 25
5 6 14 15 23 24
12 13 21 22 30 31
19 20 28 29
26 27
Ripon
June T F S
7
T W 5 6 14
S M 3 4 12 13
21
1 2 10 11 19 20
28
8 9 17 18 26 27
15 16 24 25
22 23
29 30
F S
3
T W 1 2 10
S M
8 9 17
6 7 15 16 24
4 5 13 14 22 23
31
11 12 20 21 29 30
18 19 27 28
25 26
AprilT F S
W
4 5
M T 2 3 11 12
1
10
19
8 9 17 18 26
6 7 15 16 24 25
13 14 22 23
20 21 29 30
27 28
S
MarchT F S1
W
8
M T
6 7 15
4 5 13 14 22
2 3 11 12 20 21
29
9 10 18 19 27 28
16 17 25 26
23 24
30 31
May T
ters
F
ber
Septem
T F
W
5
S
S
T
W
1 2
9
M T
7 8 16
5 6 14 15 23
3 4 12 13 21 22
30
10 11 19 20 28 29
17 18 26 27
24 25
31
S
S
6
M T 3 4 12 13
1 2 10 11 19 20
9
18
27
7 8 16 17 25 26
14 15 23 24
21 22 30
28 29
us at Ripon
From all of
year!
have a joyful
ber S
Decem
T F
6
T W 4 5 13
S M 2 3 11 12
20
1
9 10 18 19 27
ember S
Nov W T F 1
7 8 16 17 25 26
14 15 23 24
8
M T
6 7 15
21 22 30 31
4 5 13 14 22
28 29
2 3 11 12 20 21
29
.com
9 10 18 19 27 28
ters
16 17 25 26
prin
23 24
w.ripon
30
• ww
Printers,
6
.313
.321
• 800
Prin
This 2014 calendar
•
has been magnetized.
Scott Wittman was diagnosed with relapsingremitting MS five years ago on his 31st birthday.
An avid volleyball player, he decided that year
to organize a volleyball tournament in Appleton
to raise money for MS research. His most recent
tournament, in December, was his best yet –
raising $2,500. He said the donation is “in
the hope of finding a cure or better and safer
drugs to stop the progression of the disease.”
Wisconsin Congressman Sean Duffy (WI-7) met
with (left to right) Wisconsin resident Amy Rowell
and National MS Society-Wisconsin Chapter Board
member Anne Brouwer during the Society’s Public
Policy Conference in Washington, D.C.
Public Policy Conference
Wisconsin Chapter representatives joined other
MS activists March 10-12 for the Society’s Public
Policy Conference in Washington, D.C. There
they visited Capitol Hill to urge Congress to:
•
Support funding for MS research through the
National Institutes of Health, Congressionally
Directed Medical Research Programs and the FDA.
•
Cosponsor a bill to create a separate benefit
in Medicare to protect access to complex rehab
power wheelchairs for those with progressive MS.
•
Show their commitment to finding policy
solutions to those affected by MS by joining the
Congressional MS Caucus.
MS Connection | 9
Erasing Medicare’s Improvement Standard
Make sure your services aren’t denied
The Medicare Improvement Standard case, Jimmo vs. Sebelius, was approved in January 2013 and made
immediately effective. The ruling meant that the determining issue regarding Medicare coverage for
skilled services is whether the service is needed, not whether the Medicare beneficiary will “improve”.
This applies to nursing and therapy services provided both in home and skilled nursing facility settings.
U
nfortunately, sufficient education about
the change and updates to the necessary
approval processes weren’t communicated as
quickly or thoroughly as needed, leaving many
people to have Medicare coverage of their
skilled maintenance nursing or therapy denied
based on the improvement standard when in
fact it should have been covered.
Campbell, PT, MSCS, ATP, from Dean
Neurological Institute & Spine Center in
Madison. “Before the Jimmo decision, if a
client failed to improve, or got progressively
worse, Medicare would not pay to continue
therapy. Many patients still demonstrate
a need for skilled therapy, and now [those
services are covered].”
Luckily a re-review process created under the
settlement allows for another review of claims
that were denied based on the Improvement
What to Do If You Have Been Denied
A form to initiate a re-review and details on
the process itself are available on the Centers
for Medicare and Medicaid Services website
(CMS.gov) and on the Center for Medicare
Advocacy website (medicareadvocacy.org).
The deadline for seeking re-review is either
July 23, 2014 or July 23, 2015, depending on
when a claim denial became final.
“The big change is that the therapist no
longer has to demonstrate functional
improvement to justify continued
skilled care.”
-C
urt Campbell, PT, MSCS, ATP
Standard. Some restrictions may apply, but the
re-review decisions will be based on the revised
version of the Medicare Manual, which makes
it clear that Medicare coverage can be available
for skilled nursing or therapy to maintain a
person’s condition.
“The big change is that the therapist no longer
has to demonstrate functional improvement
to justify continued skilled care,” said Curt
MS Connection | 10
Going forward, be sure to speak with your
skilled services providers to make sure they
know about the change with the Improvement
Standard and can advocate for the coverage
that you are due.
If you have further questions or need more
information, contact the National MS
Society at [email protected] or
call 262-369-4400 (toll-free from inside
Wisconsin 800-242-3358).
MS Snowmobile Tour Revs Up to the $7 Million Mark
W
ith plentiful snow cover, majestic scenery and the camaraderie
of more than 120 fellow riders dedicated to the same cause,
conditions for the 2014 MS Snowmobile Tour could hardly have been
better. “Thanks to the riders, volunteers and family members who
made it a weekend to remember, and to everyone who donated,” said
Mark Schmidt, MS Snow Tour committee co-chairman. “With their
help, we’re closing in on one million miles of accumulative riding and
$7 million raised for MS over the course of the Tour’s 31-year history.”
Help reach the $7 million milestone!
Visit MSsnowmobiletour.org or call 262-369-4400
to make a donation and to register for next year’s Tour.
Guides and tail gunners who volunteer their
service made sure all riders safely covered
250 miles of groomed northern Wisconsin
trails during the weekend.
Thank you,
MS Snowmobile Tour sponsors!
The 30 first-time participants at this year’s
Tour included father and daughter duos
Michael Ignasiak and Rachel Ignasiak of
Green Bay, Wis., and Kristin Tomcheck and
Jay Tomcheck of De Pere, Wis.
The 2015 MS Snowmobile Tour will return to Lac du Flambeau January 22-24, and
registration is already open. Go to MSsnowmobiletour.org or call 262-369-4400.
First-time participants can sign up for FREE with the Ticket to Ride.
MS Connection | 11
‘I walk for yo
MS Connection | 12
ou’
Angela Docherty knows the effect Walk MS can have on someone
living with the disease because she is that someone — going from
daily injections when she was first diagnosed with relapsing-remitting
multiple sclerosis in 2002, to being able to now take medication
orally instead.
“MS research has come a long way. I injected subcutaneously and
intramuscularly for many years. Instead of dealing with numerous side
effects, and preparing for shots, I
am now taking an oral twice daily!
“I was diagnosed with MS 12 years
Unbelievable!” said the wife, mother
and 16-year Walk MS veteran,
ago. I am why I walk. My sister was
adding that she is grateful for the
diagnosed over 15 years ago. She is
why I walk. For my friends with MS, tremendous research breakthroughs
— made possible in part by those
I
walk
for
you.”
who donate to Walk MS — that have
- Angela Docherty
led to the advancements in treating
the most common forms of MS.
Yet even with the breakthroughs that have led to improvements for
her, Docherty has no plans to stop participating. She has a number
of reasons not to, beginning with her older sister, Diana, who is living
with secondary-progressive MS.
Both sisters were diagnosed in their mid-20s.
“Because I was familiar with my sister’s disease — now mine — I knew
we had to fight it together,” Docherty said.
Docherty signed up for her first walk in 1999 and has done the
Waukesha, Sheboygan, Milwaukee and Madison walks with her husband,
son, daughter, mother, father, mother-in-law and father-in-law. They go
by the team name Code Orange. Together they have raised more than
$7,000 (from 1998-2013).
“I share this important mission every year with my family,” Angela said.
“I was diagnosed with MS 12 years ago. I am why I walk. My sister was
diagnosed over 15 years ago. She is why I walk. For my friends with MS,
I walk for you.”
Angela (middle row at right) and her family make up the team Code Orange. They will be
part of Walk MS: Madison on May 4.
MS Connection | 13
In people with MS—
Walking
better matters
Only AMPYRA® (dalfampridine),
an oral medication, improves walking
in people with multiple sclerosis (MS).
AMPYRA is not a
disease-modifying treatment (DMT).
DMTs are not indicated to treat
walking in people with MS.
AMPYRA can be taken with
or without a DMT.
AMPYRA® (dalfampridine) is indicated as a
treatment to improve walking in patients with MS.
This was demonstrated by an increase in
walking speed.
IMPORTANT SAFETY INFORMATION
Do not take AMPYRA if you have ever had a seizure,
or have certain types of kidney problems, or are
allergic to dalfampridine (4-aminopyridine), the active
ingredient in AMPYRA.
Take AMPYRA exactly as prescribed by your doctor.
You could have a seizure even if you never had a seizure
before. Your chance of having a seizure is higher if you
take too much AMPYRA or if your kidneys have a mild
decrease of function, which is common after age 50.
Your doctor may do a blood test to check how well your
kidneys are working, if that is not known before you
start taking AMPYRA.
AMPYRA should not be taken with other forms of
4-aminopyridine (4-AP, fampridine), since the active
ingredient is the same.
MS Connection | 14
Visit Ampyra.com to find out
more about a FREE* TRIAL.
*Limitations and Restrictions apply.
In two pivotal trials 35% and 43% of patients taking
AMPYRA responded to treatment vs. 8% and 9% of
patients taking placebo.
Talk to your doctor to see if AMPYRA may be right for you.
AMPYRA may cause serious allergic reactions. Stop taking
AMPYRA and call your doctor right away or get emergency
medical help if you have shortness of breath or trouble
breathing, swelling of your throat or tongue, or hives.
Please see the full Patient Medication Guide on the
following page.
You are encouraged to report negative side effects
of prescription drugs to the FDA. Visit www.fda.gov/
medwatch, or call 1-800-FDA-1088.
AMPYRA® is a registered trademark of Acorda
Therapeutics®, Inc. AMPYRA is marketed by Acorda
Therapeutics, Inc. and is manufactured under license
from Alkermes Pharma Ireland Ltd. © 2013 Acorda
Therapeutics, Inc. All Rights Reserved. 05/13 AMP2446
PAID ADVERTISEMENT
MEDICATION GUIDE FOR AMPYRA® (am-PEER-ah)
(dalfampridine) Extended Release Tablets
Read this Medication Guide before you start taking AMPYRA and each time you get a refill. There may be new information. This information does not take the place
of talking with your doctor about your medical condition or your treatment.
What is the most important information I should know about AMPYRA?
AMPYRA can cause seizures.
• You could have a seizure even if you never had a seizure before.
• Your chance of having a seizure is higher if you take too much AMPYRA or if your kidneys have a mild decrease of function, which is common after age 50.
• Your doctor may do a blood test to check how well your kidneys are working, if that is not known before you start taking AMPYRA.
• Do not take AMPYRA if you have ever had a seizure.
• Before taking AMPYRA tell your doctor if you have kidney problems.
• Take AMPYRA exactly as prescribed by your doctor. See “How should I take AMPYRA?”
Stop taking AMPYRA and call your doctor right away if you have a seizure while taking AMPYRA.
What is AMPYRA?
AMPYRA is a prescription medicine used to help improve walking in people with multiple sclerosis (MS). This was shown by an increase in walking speed.
It is not known if AMPYRA is safe or effective in children less than 18 years of age.
Who should not take AMPYRA?
Do not take AMPYRA if you:
• have ever had a seizure
• have certain types of kidney problems
• are allergic to dalfampridine (4-aminopyridine), the active ingredient in AMPYRA
What should I tell my doctor before taking AMPYRA?
Before you take AMPYRA, tell your doctor if you:
• have any other medical conditions
• are taking compounded 4-aminopyridine (fampridine, 4-AP)
• are pregnant or plan to become pregnant. It is not known if AMPYRA will harm your unborn baby. You and your doctor will decide if you should take AMPYRA
while you are pregnant.
• are breast-feeding or plan to breast-feed. It is not known if AMPYRA passes into your breast milk. You and your doctor should decide if you will take AMPYRA
or breast-feed. You should not do both.
Tell your doctor about all the medicines you take, including prescription and non-prescription medicines, vitamins and herbal supplements.
Know the medicines you take. Keep a list of them and show it to your doctor and pharmacist when you get a new medicine.
How should I take AMPYRA?
• Take AMPYRA exactly as your doctor tells you to take it. Do not change your dose of AMPYRA.
• Take one tablet of AMPYRA 2 times each day about 12 hours apart. Do not take more than 2 tablets of AMPYRA in a 24-hour period.
• Take AMPYRA tablets whole. Do not break, crush, chew or dissolve AMPYRA tablets before swallowing. If you cannot swallow AMPYRA tablets whole, tell
your doctor.
• AMPYRA is released slowly over time. If the tablet is broken, the medicine may be released too fast. This can raise your chance of having a seizure.
• AMPYRA can be taken with or without food.
• If you miss a dose of AMPYRA, do not make up the missed dose. Do not take 2 doses at the same time. Take your next dose at your regular scheduled time.
• If you take too much AMPYRA, call your doctor or go to the nearest hospital emergency room right away.
• Do not take AMPYRA together with other aminopyridine medications, including compounded 4-AP (sometimes called 4-aminopyridine, fampridine).
MS Connection | 15
What are the possible side effects of AMPYRA?
AMPYRA may cause serious side effects, including:
• serious allergic reactions. Stop taking AMPYRA and call your doctor right away or get emergency medical help if you have:
– shortness of breath or trouble breathing
– swelling of your throat or tongue
– hives
• kidney or bladder infections
See “What is the most important information I should know about AMPYRA?”
The most common side effects of AMPYRA include:
• urinary tract infection
• trouble sleeping (insomnia)
• dizziness
• headache
• nausea
• weakness
• back pain
•
•
•
•
•
•
•
problems with balance
multiple sclerosis relapse
burning, tingling or itching of your skin
irritation in your nose and throat
constipation
indigestion
pain in your throat
Tell your doctor if you have any side effect that bothers you or that does not go away.
These are not all the possible side effects of AMPYRA. For more information, ask your doctor or pharmacist.
Call your doctor for medical advice about side effects. You may report side effects to the FDA at 1-800-FDA-1088.
How should I store AMPYRA?
• Store AMPYRA at 59°F to 86°F (15°C to 30°C).
• Safely throw away AMPYRA that is out of date or no longer needed.
Keep AMPYRA and all medicines out of the reach of children.
General Information about the safe and effective use of AMPYRA
Medicines are sometimes prescribed for purposes other than those listed in a Medication Guide. Do not use AMPYRA for a condition for which it was not prescribed.
Do not give AMPYRA to other people, even if they have the same symptoms that you have. It may harm them.
This Medication Guide summarizes the most important information about AMPYRA. If you would like more information, talk with your doctor. You can ask your
pharmacist or doctor for information about AMPYRA that is written for health professionals.
For more information, go to www.AMPYRA.com or call 1-800-367-5109.
What are the ingredients in AMPYRA?
Active ingredient: dalfampridine (previously called fampridine)
Inactive ingredients: colloidal silicon dioxide, hydroxypropyl methylcellulose, magnesium stearate, microcrystalline cellulose, polyethylene glycol,
and titanium dioxide.
Distributed by: Acorda Therapeutics, Inc. Ardsley, NY 10502
Issued 01/2013
This Medication Guide has been approved by the U.S. Food and Drug Administration.
AMPYRA® is a registered trademark of Acorda Therapeutics®, Inc.
Manufactured for Acorda under license from Alkermes Pharma Ireland Limited (APIL), Athlone, Ireland, utilizing APIL’s MatriX Drug Absorption System
(MXDAS®) technology.
MXDAS® is a registered trademark of Alkermes Pharma Ireland Limited (APIL).
U.S. Patent Nos.: US 5,540,938 and US 8,007,826
The stylized Acorda logo is a registered trademark of Acorda Therapeutics®, Inc.
©2013, Acorda Therapeutics, Inc. All rights reserved.
0113427ART-0
PAID ADVERTISEMENT
MS Connection | 16
Grants Support Research, Programs and Services
The Wisconsin Chapter thanks the following organizations for the grants recently awarded in support of
research, programs and services that are critical to people affected by MS.
•
•
•
•
•
•
•
•
•
•
•
$25,000 Ladish Co. Foundation
$10,000 Edward U. Demmer Foundation
$7,500 Acorda Therapeutics, Inc.
$5,000 David V. Uihlein Foundation
$5,000 Lux Foundation, Inc.
$5,000 West Bend Mutual
$4,500 Briggs & Stratton Corporation
Foundation Inc.
$4,214 Novartis
(Advanced Health Media LLC)
$3,400 Donald and Joanne Krause
Family Foundation
$2,000 Barrow Medical Foundation
$1,030 Greater Milwaukee Foundation
David C. Scott Foundation Fund
• $1,000Fidelity Charitable Gift Fund –
Schiestle Family Fund
• $500 Sub-Zero Wolf Foundation Inc.
• $500 Perkins Coie Foundation
• $500 Questcor Pharmaceuticals, Inc.
• $300 Greater Milwaukee Foundation’s
Colton Charitable Fund
• $300 Telly Foundation, LTD
• $186 Leeds Charity Fund
• $100 Madison Community Foundation’s
Thomas G. and Karen C. Ragatz
Designated Passthrough Fund
• $100 The Schoenauer Family Foundation, Inc.
• $50James and Nancy Youngerman Donor
Advised Fund of the Jewish Federation
of Madison
In total, more than $75,000 was received in gifts and grants from October through December. If you are
connected to a foundation that you would like to suggest for a grant opportunity, or for more information
on how you can help, contact Cindy Yomantas at 262-369-4431 or [email protected].
AUTOS-4-MS
Help drive MS away –
donate your vehicle today!
When you donate your car, truck, motorcycle, boat or trailer to the National MS Society, you can
feel good knowing 100% of the proceeds go directly toward benefiting people with MS.
Proceeds fund vital research into the cause, cure and treatment of MS as well as programs and
services for people living with MS.
To start the donation process:
•C
all our toll-free number 877-672-8864 or submit the
electronic donation form found at AUTOS4MS.org
• A towing company will contact you to schedule your pickup
•A
receipt will be mailed to you after the completed sale
transaction of the vehicle.
For answers to all your questions, please visit AUTOS4MS.org or call 877-672-8864
ADVERTISEMENT
MS Connection | 17
Year in Review
Many Do It Yourself Fundraisers are held throughout Wisconsin each
year for multiple sclerosis raising awareness and funds in fun and creative
ways. Businesses do so with jeans days and bake sales, schools have coin
wars, and individuals hold concerts, golf outings and more. All these
events, their organizers and those who participate truly make a difference.
More than 115 DIY events were registered with the Wisconsin Chapter
in 2013. The events are listed here, along with the name of the organizer
and the dollars raised as reported to the Chapter.*
January
8th Annual Help Find-A-Cure
for MS Benefit
Ben Romenesko
RAISED $26,000
MS Snow Rally Beer Bust
and Silent Auction
Dave and Deb Gnotke
RAISED $2,322
MS Raffle Fundraiser
at Bob’s Riverview
Maria Phelps
RAISED $2,536
Take a Shot at MS
Casual for a Cause Day
Unified Catholic Schools
RAISED $1,411
Kids Bowl-A-Thon for
MS Research
Trina Giese
RAISED $1,197
Johnson Controls Jeans Day
Verna Lou Moschella
RAISED $2,230
1st Annual MS Volleyball
Tournament
David Koch
RAISED $970
DIY Success Story
Maybe it was the lure of a
“bottomless glass,” but Dar’s
Pub was packed for the MS
Snow Rally Beer Bust and
Silent Auction. Run by the
Gnotke family, the proceeds
were applied toward their
fundraising minimums for
the MS Snowmobile Tour.
MS Connection | 18
For more information
about holding your own
DIY Fundraiser in 2014,
contact Kristin Raeber at
[email protected]
or 262-369-4436.
February
AG Drive Chili Cook-off
Terri Ellinger
RAISED $207
Arrowhead High School
Girls Soccer Fundraiser
Trina Bower
RAISED $10,155
11th Annual Rabbits
Unlimited LTD Rabbit Hunt
Don, Tom, and Alan Bell
RAISED $30,000
* DIY Fundraisers and totals raised as reported to the Wisconsin Chapter as of February 1, 2014.
Some events did not report their final results.
Year in Review
Miracle Minute
Menomonie High School
Student Council
RAISED $400
Dance for a Cure
Paul Schneider
RAISED $536
Lena High School Girls’
Basketball Game and
T-shirt sales
Lena High School Girls’
Basketball Team
RAISED $1,000
Hip Hop to Stop MS
Staci Both
RAISED $401
March
Royal Credit Union Jeans Day
and Bake Sale (Eau Claire)
Traci Aumueller
RAISED $1,058
Bon Ton Stores Jeans Days
Mary McGrath
RAISED $624
5th Annual Family Fun
Day featuring Texas
Hold’em MS Funderaiser
Connie Plier
RAISED $22,425
11th Annual Blarney Bash
Ashley Gorski
RAISED $30,111
DIY Success Story
The 3,000-mile MS Run the US
relay brought together 14
runners who ran the equivalent
of a marathon a day to cross the
country and raise money for
MS research. The organization
was founded by Ashley Kumlien
in honor of her mom, Jill.
Charity Jamboree –
Music Can Beat MS
Steve and Jane Schmieding
RAISED $7,345
West Salem Run/Walk
West Salem High School
Student Council
RAISED $1,000
Shamrock Shuffle & Supper
5K Run/Walk
Jill Jones
RAISED $4,621
6th Annual We’re Egan to
Cure MS Fundraiser
Jenny Egan
RAISED $6,558
Share Night at Culver’s
(Spring Green)
Stacie Prochaska
RAISED $187
April
Dining to Donate Applebee’s
(Madison)
Stacie Prochaska
RAISED $70
Marine Credit Union
Silent Auction
RAISED $834
Sargento Foods Dress
Down Month
RAISED $1,188
“Irish” Beef Stew Supper
and Blind Auction
Judy Goeckermann
RAISED $2,954
Uno’s Chicago Grill –
Dough Raiser
RAISED $42
Chippewa County Department
of Public Health Casual Friday
RAISED $16
MS Society Bake Sale
Fundraiser
Kettle Moraine High School
Sociology Class
RAISED $62
MS Connection | 19
Year in Review
E-Race MS 5k/10k Run/Walk
in Madison and Nashotah
Becky Hall
RAISED $2,125
Dining to Donate at Applebee’s
(Wauwatosa)
Zaq and Jake Ziemba
RAISED $73
Eat for MS at 5th Quarter
Bar & Grill
Kate Skogen
RAISED $272
New England Financial
BBQ Lunch
Carrie Serocki
MS Run the US – Relay
Ashley Kumlien,
MS Run the US Inc.
RAISED $180,000
Rock’n MS
Mitchell Maloney
RAISED $374
DIY Success Story
The Apple Holler MS Orchard
Walk & Charity Fundraiser in
Sturtevant included an all-youcan-eat breakfast, entertainment,
one-mile walk through the
orchard and a bag of apples,
all for $20. This year’s event
will be on Aug. 23.
2013 Strike Out MS
Kate Bertram
RAISED $11,904
6th Annual Open House
Karen Minor
RAISED $1,028
1st Annual Doubles Pool
Tournament for MS
Angie Bryant
RAISED $681
Golf Fore MS
Victor Erickson
RAISED $470
Slices Bar & Grille Charity
Event and Meat Raffle
Alan Schumacher
RAISED $335
MS Connection | 20
Walk with Strength
Zach Mielke
RAISED $6,000
May
Pampered Chef Fundraiser
Shelley O’Leary
RAISED $91
MS Fundraiser –
Mondovi Sneakers
Rose Sabelko
RAISED $1,259
Premier Bank Cinco de
Mayo Party
RAISED $87
Zumbathon for MS
Kristen Quam
RAISED $200
Rebels with a Cause Grill Off
Laura Honish
RAISED $20
RD Benefit Ride
Rick Olson
RAISED $1,100
Wells Fargo Collection Day
(Brookfield)
Jim VanDeven
RAISED $300
O’Hare Group Charitable
Clay Shoot at Warn Valley
Sportsmen’s Club
John O’Hare
RAISED $3,275
9-Pin Tap Bowl-A-Thon
Julie Madden
RAISED $3,454
Year in Review
Fox Valley Road &
Track Classic XII
Roy Fine
RAISED $2,000
Frank’s Newport
Anniversary Party
Frank Creed
RAISED $225
June
Brew at the Barn
Christin Harding
RAISED $705
9th Annual Neipert
Golf Outing
Alan and Nicki Neipert
RAISED $1,350
Screws 2 MS Benefit
Terri Formella
3rd Annual Bag MS
Bean Bag Tournament
Joseph Fangmann
RAISED $2,350
Walk MS Butternut
Donna Lohman
RAISED $1,585
Wisconsin Leap Training
Conference Fundraiser
Lisa Bell
RAISED $400
Rummage and Bake Sale for MS
Alicia Osiecky, Amy Zumach
and Colleen Zwitter
Jamcamp for MS
Corissa Klages
Burpies for a Cause
Jared Markiewicz
RAISED $2,675
Gamble Scramble “Fore” MS
Dwayne Sweeney
RAISED $5,609
3rd Annual Reel Brothers
Harley Davidson Ride-Cows,
Curves & Chrome
Robyn Reel
RAISED $1,127
Jamaican Jerk Chicken
Fundraiser
Lori DeNoble
RAISED $5,268
8th Annual Damn Yankees
Watering Hole MS Benefit
Ron Scherwinski
RAISED $5,420
Thomas Jefferson Middle School
Leadership Class Bake Sale
Leadership Class
RAISED $47
Independence State Bank
Jeans for Charity
(Independence)
RAISED $175
July
Simply Sweet Dinner
Caroline Pollock-Cho
Make a Difference Monday
at Quaker Steak & Lube
(New Berlin)
Maggie Sonnemann
RAISED $330
Rookies Bar Golf Outing to
Fund MS Research
Pat and Lisa Haack
RAISED $1,824
DIY Success Story
Perfect weather and nearly 50
boats helped make the 2013
Annual Minocqua Antique and
Classic Wooden Boat Show a big
success. Concessions, T-shirts and
party beads were sold to raise
money for the event’s charity of
choice, the National MS Society.
© Dean Acheson
MS Connection | 21
Year in Review
7th Annual Fighting MS
Golf Scramble
Karen Pagel
RAISED $10,020
Carrier Insurance Agency
Jeans Day
Randy Eddy Sr.
RAISED $1,000
WEA Trust Community Services
Committee Brat Sale
Nancy Nilsen
RAISED $485
DIY Success Story
The third annual Milton Mud
Challenge was promoted
as having “more mud, more
obstacles, more fun and more
party than ever.” That included
food, drinks, live music, raffles
and kids’ course in addition
to the 5K obstacle course.
Greater Duck Creek Open
24th Annual Croal Open for MS Judy Buchta
RAISED $300
Dan, Mike and Tim Croal
RAISED $38,428
Orange Leaf Fundraiser
Maggie Sonnemann
TNT Lanes Bowl for a Cure
RAISED $113
Kelvin Kimball
RAISED $933
Pedal & Party in Pardeeville
with a Purpose
Harry and Kay Lum
RAISED $4,570
2013 Annual Minocqua
Antique and Classic
Wooden Boat Show
Gordon Moore, Al Hanley
and Pete Ekstrom
RAISED $6,873
A Drive for MS-Bogey Bare
MS Scramble
Ken Bare
RAISED $7,129
MS Connection | 22
August
9th Annual Apple Holler MS
Orchard Walk & Charity
Fundraiser
Sheri Gavin
RAISED $12,146
Auto Paint & Supply Car
and Bike Show for MS
John Scherwinski
RAISED $5,284
Nelson Global Products
Golf Outing
Susan Ullman
RAISED $960
Milton Mud Challenge
Heidi Crull
RAISED $31,913
Scramble Fore MS Golf Outing
Debbie Knudson
Northwestern Bank
Casual Day Fundraiser
RAISED $66
Pat’s Par-Tee 13th Annual
Ladies Scramble
Pat Klotz
RAISED $1,796
7th Annual JMO “A Drive
for MS” Golf Outing
Heidi Erdmann
RAISED $2,600
Annual Rummage Sale
to Benefit MS
Connie Plier
RAISED $2,726
Year in Review
September
4th Annual MS Golf for a Cure
Martin and June Hillert
RAISED $27,576
ROUGH Tailgate Fundraiser
ROUGH Sportswear
RAISED $1,000
4th Annual Tee’d Off at MS
David Blavat
RAISED $2,500
Mukwonago High School
Annual Staff Run/Walk
Bruce Lammers
RAISED $305
Golf MS
Wendy McCarthy
RAISED $2,620
Dogleg Open Golfing
to Support MS
Dylan Guendert
RAISED $3,800
7th Annual Ken Fest
Gina Felten
RAISED $2,700
Shaleigh’s 2nd MS Bike Ride
Shaleigh Fitzpatrick
RAISED $840
Mackville Tractor Poker Run
and 50/50 Raffle
Al Reis
RAISED $890
Take the Reins for MS
Becky Perron
RAISED $4,190
Fight MS Golf Outing
Carla Knitter
RAISED $1,575
Ynot II Annual MS Benefit
Shaleigh Fitzpatrick
RAISED $935
Ride for Clyde
Dawn Janisch
RAISED $6,520
Stafford Rosenbaum Casual
for a Cause Day
RAISED $90
October
Trigs Brat Fry
Stan Panek
RAISED $157
Fall Festival
Elizabeth Potter
RAISED $475
Lynn Ann’s Spookwalk
Wayne Newby
RAISED $850
Beanbag & Horseshoe
Tournament
Travis Kluewer
RAISED $800
November
4th Annual Generation
OptiMiStic Miller-Coors
MS Benefit
Kim Muszynski
RAISED $5,181
Oregon Rotary Club Sunshine
Fund Collection
Oregon Rotary Club
RAISED $232
2nd Annual Perry/Vick
Bowling Tournament
Kevin Vick
RAISED $5,000
Turkey Trot 5K Run/Walk
Denise Johnson and
Kris Benedict
RAISED $1,000
Tower Up for MS
Joni Nogay
RAISED $25
December
Fifth Annual Soiree for Success:
A Fundraiser to Fight MS
Shayla Rosen, Katie Walsh,
Jen Tarantola and Jill Frank
RAISED $28,641
Hayward Community Credit
Union Casual Fridays
Kristin Tingo
RAISED $40
MS Connection | 23
Non-Profit
Organization
U.S. Postage
PAID
A Publication of the National Multiple Sclerosis Society-Wisconsin Chapter
1120 James Drive Suite A
Hartland, WI 53029
Milwaukee, WI
Permit No. 2868
www.wisMS.org
Toll Free 1-800-242-3358
262-369-4400
®
Register today
walkMSwisconsin.org
Wisconsin Chapter: 262-369-4400
Wisconsin
2014
Appleton
Lawrence University
Sunday, April 27
Cedarburg
Cedarburg High School
Saturday, May 3
De Pere
West De Pere
High School
Sunday, April 27
Eau Claire
UW-Eau Claire
Saturday, April 26
Fond du Lac
Marian University
Sunday, April 27
Walk MS connects people living with MS and those who care about them. This community
event raises critical funds to support life-changing programs and cutting-edge research.
Janesville
Palmer Park
Sunday, May 4
Kenosha-Racine
Mahone Middle School
Sunday, April 27
La Crosse
La Crosse Center
Saturday, April 26
Madison
Warner Park
Sunday, May 4
Marshfield
Wildwood Park
Saturday, April 26
NEW
!
Menomonee Falls
Menomonee Falls
High School
Saturday, May 3
Milwaukee
Summerfest Grounds
Briggs & Stratton
Big Backyard
Sunday, May 4
Oconomowoc
St. Paul’s Lutheran
School
Saturday, May 3
Oshkosh
Lourdes Academy
Sunday, September 14
Platteville
UW-Platteville
Sunday, April 27
NEW
!
Rhinelander
Rhinelander
High School
Saturday, September 6
Sheboygan
Blue Harbor Resort
Sunday, April 27
Stevens Point
UW-Stevens Point
Sunday, September 14
Waukesha
Frame Park
Sunday, September 14
Wausau
Patriot Center
Saturday, April 26
Check-in: 9 a.m.
Walk Begins: 10 a.m.
be inspired. Get connected. walk MS.