CV - World Craniofacial Foundation

REFLECTIONS
WORLD CRANIOFACIAL FOUNDATION N E WSL E TT E R
Summer 2008
The World Embraces A Child
Craniofacial abnormalities have no prejudices when it comes to
gender, ethnicity or faith. Initially given a death sentence, a
little boy from Serbia was embraced by the world to give him a
chance at life.
“There is something wrong with his head.” Not the news any parent wants to
hear, but they were the first words Mirko and Rita Marinkov heard when Marko
was born in April 2007. Doctors were reluctant to let the new parents see their
baby boy. Subsequently diagnosed with Crouzon Syndrome, Marko was with
his parents only briefly before he was transferred to a Belgrade hospital where he
lived during his first three months of life.
Mirko quit his job to become a full-time caregiver to Marko, and the next couple
months proved to be a challenge. Marko developed hydrocephalus, fluid on the
brain, and only one doctor was willing to operate by inserting a shunt to relieve
the pressure and swelling. Serbian doctors gave Marko only two months to
live, and Rita and Mirko were told to take their son home so he could spend his
remaining time with family. “We were desperate. We could just not sit and wait
for him to die,” Mirko shared.
The Ray Tye Medical Aid Foundation in Boston generously offered to cover the
hospital. Contacted by way of the American Church in Paris, the American
Catholic Women’s Organization (ACWO) of Paris provided outreach and
support, including food and gift cards. One woman recruited her husband for
help. Emmanuel Kaspereit, an attorney in France, offered his services pro bono
in case the Marinkov family needed a visa extension. Another ACWO member
incredibly opened her home to the family until their return home to Serbia.
The Marinkovs found hope when they saw a documentary on Petero, a former
World Craniofacial Foundation patient from Uganda with Crouzon Syndrome.
The pure, unconditional generosity of these strangers allowed the
WCF asked Dr. Eric Arnaud, a Medical Advisory Board member and
Marinkovs’ worry to be focused only on their little Marko at the most
Necker Hospital craniofacial surgeon in Paris, to review Marko’s
critical of times. In late February, Marko underwent his first surgery.
“We
case. Upon his evaluation, Dr. Arnaud proposed surgery and
The six-hour procedure repaired a Chiari malformation, brain
offered to donate his services. All prayers seemed answered;
could just
tissue protruding into his spinal canal as a result of a misshapen
however, road blocks appeared and threatened any chance of
not sit and
skull, which can be fatal. More than a month later, Marko had his
saving Marko.
wait for him
second surgery and remained in the hospital for bone distraction,
to die.”
a
process to further correct bone deformities. Two weeks later,
Although the doctor was
Marko’s treatment was complete and he celebrated his first birthday
able to donate his services,
in Paris “a very happy baby” full of smiles.
the hospital was not. Other related
medical procedures would be necessary,
plus Marko may need future surgeries as
he grows. Serbia has no governmental
funds to help. The initial surgeries would
also take weeks. With no family or
friends in Paris - one of the world’s most
expensive cities, the family had no place
to stay or enough money to cover the
long trip or food. The Marinkovs also
had to secure visas in order to enter and
stay in France. The obstacles seemed
impossible to overcome.
WCF searched for help around the world, one by one people and organizations
stepped up to save this little boy none of them knew.
After a year of emotional ups and downs, Marko, Rita and Mirko are finally
home in Serbia able to celebrate. Finding salvation for Marko in the heart of
strangers thousands of miles away was a miracle coordinated by WCF. “You
saved our boy’s life and offered him an opportunity for a new life. We still
cannot believe what happened in the last few months. We are very thankful to
you for not rejecting us at the beginning and for doing everything to return all of
us to life by helping our little boy.”
Rita and Mirko share that Marko continues to do well – he is growing and “always
smiling.” He attends physical therapy and is learning how to sit up by himself.
Marko is also learning how to take in real food, as he has always been tube-fed.
“We are now in charge for giving him love, education, nice childhood and we are
determined and strong enough to provide that,” Rita and Mirko write.
How wonderful it is when the world comes together – to save the life of
one child.
inside this issue...
BUTTERFLY
UPDATES (p. 4-5)
WAYS
TO HELP (p. 8)
SPECIAL RECOGNITION
2008 DONORS
(p. 7)
2WORLD CRANIOFACIAL FOUNDATION
Fellows Sharpen Skills to Aid Children
Worldwide, a severe deficiency in the number of proficiently trained craniofacial surgeons leaves thousands of children without
critical, life-saving medical treatment. With your help, WCF has established a variety of fellowship programs to educate and train
craniofacial teams and auxiliary staff, so more children may receive excellent care. WCF is currently hosting two fellows at Medical
City in Dallas, Texas, and we would like to share with you their thoughts on the importance of this opportunity and your support.
I am a young plastic surgeon from Shanghai, China. In our country, there are many children with craniofacial deformities. Although my hospital in China is a big
hospital, we neither have a craniofacial center nor can perform craniofacial surgery.
With your support, WCF and Dr. Kenneth Salyer are helping us establish a new craniofacial center in Shanghai and sponsoring me as a research fellow in the United
States at Medical City. I am honored to have this opportunity as the WCF Research Fellow. This one-year experience is very important for me as a plastic surgeon,
not only for research, but also so I may learn a great deal from the clinical observation, as well.
As the core member of our future craniofacial center and on behalf of the doctors in our department, I want to express our appreciation for WCF’s support. We are
happy that we will be able to help more and more Chinese children in the future.
Dr. Salyer is internationally recognized as a leader and pioneer in craniofacial surgery.
As his student, he has taught me that in the hands of the surgeon lies the future of
the infant. Under his supervision and with help from WCF, our dream to establish
a dedicated craniofacial center in China to help more children with craniofacial
deformities will come true.
Again, thank you for helping us help the children of WCF.
A young plastic surgeon from China,
Haisong Xu
WCF Research Fellowship: Dr. Xu will return to China at the end of his fellowship
to complete his last year of residency, then back to the U.S. and WCF as the
ACGME Clinical Fellow. Dr. Xu is our hope for establishing the first center of
excellence in China.
After finishing my plastic surgery education in Buenos Aires, Argentina, I had the opportunity to come to Dallas in 2004 for 3 months as an ASMS (American Society
of Maxillofacial Surgeons) International Scholar sponsored by WCF. During that time I was exposed to most craniofacial procedures and was able to learn from
one of the masters of this “life-changing” specialty, Dr. Kenneth Salyer, and his colleagues on the importance of the multidisciplinary approach in a dedicated
craniofacial center. This incredibly motivating experience inspired Dr. Martin Chavanne and me to develop a dedicated craniofacial center in my country, where we
began to treat children with facial deformities. With the help of WCF, our center has increased its possibilities and it is now established in one of the best Argentine
hospitals, The Hospital Universitario Austral. When I left Dallas, I understood the importance of seeking excellence in the treatment of these kids and promised
myself that I would come back to Dallas for a full year as a clinical craniofacial fellow.
Four years have passed, and I’m now very fortunate to be able to accomplish my goal. I’m sure that this fellowship experience will allow me to complete the
craniofacial surgical education that I need in order to treat Argentine children with facial deformities with the same excellence and dedication as they have in Dallas
at the International Craniofacial Institute (ICI).
I will always be very grateful to Dr. Kenneth Salyer and the WCF staff, Dr. David Genecov and Dr. Raul Barcelo of ICI, and, most importantly, those who support
WCF for giving me the opportunity to live this amazing learning experience.
Dr. Diego M. Steinberg, M.D.
WCF ACGME Clinical Fellowship: After completing the one-year fellowship at Medical City Dallas Children’s Hospital, Dr. Steinberg will return to Argentina to lead
the craniofacial team at Austral Hospital. The craniofacial center is expected to operate on 500 indigent children a year.
WCF would like to introduce
. . . Jeanne Skartsiaris as our new Executive
Assistant. Jeanne provides WCF’s President
and Dr. Kenneth Salyer with high-level
administrative support. She is a licensed
Ultrasound Technologist and has a background
in medical sonography, as well as seventeen
years experience working as a medical/legal
photographer and art director for a plaintiff’s
law firm.
Her knowledge has been quite
beneficial in preparing WCF presentations.
Jeanne has a Bachelor’s degree in Visual Arts
and an Associate’s degree in biology.
. . . our newest Medical Advisory Board member, Dr. John A.
Persing, Professor of Plastic Surgery and Neurosurgery at Yale
University School of Medicine and Chief of Plastic Surgery at Yale
University School of Medicine and Yale-New Haven Hospital. He
received his medical degree at the University of Vermont and
his residency training in Neurosurgery and Plastic Surgery at
the University of Virginia. His major clinical interests are related
to craniofacial surgery and the treatment of problem vascular
anomalies. He is the author of more than 200 publications on
these and other topics. His research has focused largely on the
basic mechanisms in the development of cranial deformities in
craniosynostosis and their subsequent treatments.
3
SUMMER 2008 NEWSLETTER
Board of Trustees
Chairman
Kenneth E. Salyer, M.D.
Doug Canfield
CEO/Founder, Canfield Scientific
Dane Miller, Ph.D.
Founder/Director, Biomet
Jonah Shacknai
Chairman/CEO, MEDICIS
Vice Chairman
Chris Fashek
Former Vice Chairman, KCI
Rena D’Souza, D.D.S., Ph.D.
Chair, Dept. Biomedical Sciences,
Baylor College of Dentistry
Fernando Ortiz-Monasterio, M.D.
Jim Thompson
President/CEO, ORIX USA
Treasurer/Secretary
Mary Spencer
President/CEO, The Spencer Group
Dianne Dismukes, R.N., B.S.N., M.B.A.
International Healthcare Consultant,
PricewaterhouseCoopers
Jeanne Pomatto-Hertz
CEO/Founder, Cranial Technologies
Derek Bruce, M.D. USA
Yu-Ray Chen, M.D. Taiwan
Grady Crosland, M.D. USA
David David, M.D. Australia
Alvaro Figueroa, D.D.S. USA
Frank Graewe, M.D. South Africa
Mutaz Habal, M.D. USA
John Hiebert, M.D. USA
Ralph Holmes, M.D. USA
Ian Jackson, M.D. USA
Anil Madaree, M.D. South Africa
Daniel Marchac, M.D. France
Sam Noordhoff, M.D.
Honorary Board Member
Ebby Halliday Acers
Medical Advisory Board
Chairman
Arun Gosain, M.D. USA
Louis Argenta, M.D. USA
Eric Arnaud, M.D. France
Carlos Raul Barcelo, M.D. USA
Stephen Beals, M.D. USA
Fernando Molina, M.D. Mexico
John Persing, M.D. USA
Michael Sadove, M.D. USA
Arun Singh, M.D. India
Henry Vasconev, M.D. USA
Linton Whitaker, M.D. USA
Akira Yamada, M.D. Japan
International Advisory Board
Lori Feathers, USA
Curtis J. Schroeder, Thailand
WCF STAFF MEMBERS
Sue Blackwood
Vice President
Winifred Rutenbar
Family Care Director
Rebecca A. Rhule
Associate Director of Development
Jeanne Skartsiaris
Executive Assistant
Crystal Schroeder
Project Coordinator
Pickens’ Gift Launches Newest Craniofacial Center
The T. Boone Pickens Foundation awarded WCF with a $100,000 grant to establish a specialized craniofacial center and team at Austral Hospital,
a state-of-the-art facility in Buenos Aires, Argentina. with the support to conduct such complex procedures, WCF is now able to purchase the
necessary operating room essentials, such as an anesthesia machine and surgical table to develop a craniofacial center..
WCF is partnering with Dr. Martin Chavanne, the chief craniofacial surgeon at Austral
Hospital, and Dr. Diego Steinberg, who is currently in Dallas for a clinical fellowship
at the International Craniofacial Institute. These talented surgeons will be the core
of the craniofacial team for the WCF Argentina center.
South America desperately needs a craniofacial center
where children, like Agostina Martinez and Yamila Soria,
can receive timely, cost-effective treatment. With a fully
dedicated craniofacial center, more children will have the
opportunity for dramatic and often life-saving procedures.
Stryker Advances Care for Children in Philippines
WCF made another move towards developing dedicated craniofacial centers with
high quality care outside the United States. On June 17, WCF received official
approval for almost $70,000 worth of surgical instruments kindly donated by Stryker
Corporation. A selection of craniofacial life-saving tools is being sent to Manila to
be used in a dedicated craniofacial center headed by Dr. Bernard Tansipek.
In Asia, hundreds of thousands of children with craniofacial abnormalities are
being left untreated. To help aid in this problem, WCF has developed a relationship
with Philippine General Hospital and its chief craniofacial surgeon, Dr. Tansipek.
Philippine General Hospital is the largest facility in the country, containing a total
of 1,400 beds and an extensive surgical training program. This state-owned
hospital run by the University of the Philippines-Manila sees over 600,000
patients each year.
Stryker Corporation is a global leader in medical technology, improving the
lives of patients in over 120 countries. They develop and
produce high quality products to the benefit of hospitals
and their patients.
This center will be able to help many children, like
Van Mark Elisan, who suffers from a condition called
frontonasal encephalomeningocoele, a pocket
protruding from the face consisting of brain
and meninges tissues. A successful
partnering of knowledge and
equipment was able to give this
child a chance at recovery. WCF
hopes that this developing center
will provide opportunities for many
more children, like Van, in need.
4WORLD CRANIOFACIAL FOUNDATION
Butterfly Updates
Samuel Urey
Not until he was five years old was Samuel diagnosed with
Crouzon Syndrome. His mother became more persistent in
getting proper medical care when Samuel started suffering
from terrible headaches and vision loss due to intercranial
pressure.
With your support, WCF facilitated medical care, travel, food
and lodging. Samuel traveled from Liberia to New York City to
ph o
to : M
ar y Sp an o
receive surgery by Dr. Joseph McCarthy and his craniofacial team at
NYU Medical Center. Ronald McDonald House, who only caters to cancer
patients, made an exception and allowed Samuel and his mother to reside there during
his treatment. Samuel underwent his first reconstructive procedure in late May and is
doing extremely well.
Livia Busby
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Liora Malecki
tu rd iva nt
In February, little Livia, 4, underwent anterior cranial vault
remodeling. Livia has craniosynostosis, a premature
closing of the cranial sutures before brain growth is
complete – the brain is unable to grow in its natural
shape and the skull becomes deformed. Several more
surgeries will be necessary as she grows, and Livia lives
over 140 miles from her surgeon. Your continued support
will provide a place for Livia and her family to stay for each of
her many surgeries to come.
Kaitlynn Cast
To-date, five-year-old Liora has undergone 17
surgeries in the course of five years to treat her
arteriovenous malformation (AVM), a tangle
of abnormally connected arteries and veins
located on her nose. Since she was two, Liora
has traveled from her home in Florida to seek
treatment with specialists Dr. Milton Warner and
Dr. Alex Berenstein at Roosevelt Hospital in New
York City. As a friend of WCF, you help children
like Liora receive treatment from craniofacial
specialists with your contributions towards travel
and housing costs.
At only nine-months-old, Kaitlynn is an expert traveler having
already flown from Nebraska to Texas twice! Dr. David
Jimenez of University Hospital is treating Kaitlynn for
sagittal craniosynostosis, a condition in which the
sagittal suture or “soft spot” closes early and inhibits
growth of the head from side to side. The head is
then forced to grow front to back causing the skull to
be elongated and narrow. Dr. Jimenez performed an
endoscopic strip craniectomy, a minimally invasive
treatment for early correction, and then fitted Kaitlynn
with a postoperative molding helmet. We are pleased
to report Kaitlynn’s prognosis is very good.
PARENTS’ CORNER
As everyone knows, the birth of a child brings with it
excitement and anticipation. This pregnancy had mirrored
the first one. Shortly after 2:00 p.m. on August 18, 1994,
Jacob arrived at the hospital in Great Bend, Kansas. I knew
as he was being delivered that something was wrong,
but I didn’t know what. The obstetrician told us that
there was a birth defect. Denise, my wife, and I would
later learn that he was bilateral cleft lip and palate
(CL/CP). Fortunately for us, the hospital had experienced
a CL/CP in the last year, so they knew what to do.
They were prepared to feed him and had a hospital vicepresident and his wife, who had a daughter born CL/CP
sixteen years earlier, come to visit us that evening. The
next day their daughter came to visit us. They brought
a message of hope.
We began the arduous task of finding a doctor. We settled on a
doctor in Wichita, KS. We did the usual surgeries during the first
year. Each year, we attended the clinic and visited numerous
doctors and specialists. Each year, the answer was the same,
“Wait.” As Jacob got older, his sister, Denise, who was 3 _ years
his elder, would come to us and say, “Those people are talking
about Jacob.” We would talk to her and explain the situation.
Then, Jacob started coming to us saying, “Those people are talking
about me.” That’s when we knew we had to do something else.
We contacted Dr. Salyer’s office and they
gave us two choices: make the six hour
trip to Dallas for a personal visit or take
pictures of Jacob and Dr. Salyer would
write us back with an opinion. We opted
for the pictures and waited for the written
response. The written response never
came because the office called and said
Dr. Salyer wanted to see us immediately.
In May 1999, we made the first of what
have now been over 30 trips to Dallas.
Jacob’s first surgery with Dr. Salyer was
in July 1999. What was supposed to be a 1 1/2
hour surgery ended up being 3 hours. Why?
Dr. Salyer’s drive for perfection and desire
to do as much as possible in one surgery
allowed him to accomplish more than was
originally planned. As strange as it might
seem, the surgery was bittersweet. With no surgeries for over three
years, we had grown accustomed to Jacob’s appearance and now it
had changed drastically.
They
brought a
message
of hope.
In April 1999, Denise was watching the Oprah Winfrey show. One of the segments
that day featured Dr. Hubli, an associate of Dr. Salyer, showing the work that they
do. They showed pictures of children and some of them resembled Jacob. She
got on the internet to learn more about Dr. Salyer and his work.
We’ve met many wonderful people over the years in Dallas. The
nurses in the pediatrics unit have gone above and beyond the call
of duty. What we have noticed over the years in our conversation
with parents of all children with special needs is the desire to raise
them to be as “normal” as possible. Surgeries are scheduled around
summer ball for the older children, etc. Jacob played ball one summer
after having surgery in April. He had to wear a helmet with a face mask while
batting and playing in the field to prevent a ball from hitting him in the mouth.
Do we wish we had known about the World Craniofacial Foundation in August
1999? Absolutely. However, we’re just glad we found them when we did.
- Jeff Welker
5
SUMMER 2008 NEWSLETTER
Kaden Reierson
Not many 5-year-olds, if any at all, celebrate their
birthday having bone tissue removed from their jaw.
For Kaden, though, this was a bittersweet birthday
spent at Medical City Dallas far from his home and
two favorite cousins in Minnesota.
Kaden has cherubism - abnormal bone tissue in the
lower and upper parts of the jaw become enlarged as
bone is replaced with painless, cyst-like growths that
interfere with normal tooth development. Dr. David Genecov
had already performed six successful “debulking” operations for
this rare condition, and Kaden was his seventh. After removing the abnormal bone tissue,
Dr. Genecov repositioned his jaw – up until then Kaden could not chew his food! Although
the facial swelling will take several months to disappear, Kaden gave us a “thumbs up”
after surgery and is now back at home recovering rapidly.
David Zubia
Born with a unilateral cleft lip and palate, David must undergo
secondary cleft lip repair and nasal reconstruction. David
travels over 430 miles from his home to see his doctor –
a 7-hour drive! Your gifts alleviate the Zubia family’s worry
of how to pay for gas for the long trips and lodging during
David’s medical treatment.
Jordan Marsh
Since she was a very young child, Jordan has been travelling from Illinois to Texas for
treatment of hypertelorism, an excessive amount of space between her eyes and nose.
She has endured many corrective surgeries, and it has been a pleasure to watch her grow
up. Now 17, Jordan is blossoming and we thank you for supporting
her family’s travel expenses over the years and two trips this
past spring.
Ahmed & Mohamed Ibrahim
WCF has been directing and monitoring Ahmed and Mohamed’s care since their
return to Cairo, Egypt, in November 2005. The boys enrolled in school classes
to facilitate their special needs, and their physical therapy routine continues on
a daily basis, along with ongoing medical care. WCF is thrilled to share with you
that both boys graduated Kindergarten in May 2008, and Mohamed has moved
into mainstream classes. Both boys have grown and their unique personalities
continue to develop.
Anastasia & Tatiana Dogaru
Anastasia and Tatiana are now 4-years-old and just completed
their first year of playschool! The girls did very
well and struck up a wonderful friendship
with one of their classmates. This spring,
the girls got glasses and were presented a
customized-bicycle built just for them by a
family friend. Ana, Tati, Maria, Claudia and
Alin will be adding to their long list of friends,
as the family will soon move to Chicago
where Alin, a Byzantine Catholic priest, has
been assigned to a parish. WCF is still hopeful
that a team of doctors will find a way to help
Ana and Tati.
Dionnie Marie FaylogA
After her surgery in Texas, Dionnie returned home
to the Philippines determined to fulfill her dream to
become a teacher. She was previously unable only
because of her appearance. Dionnie has enrolled in
a review class for teachers at a university in Manila.
The board exam is late September and her family is
hopeful she will pass and Dionnie can finally begin
her teaching career.
OUR HEROES
American Housing Foundation & Ashley Furniture Homestore
WCF is the beneficiary of 5 fully-furnished apartments in Dallas thanks to American Housing
Foundation (AHF) and Ashley Furniture. Not only do our children face several visits over time
to doctors, the visits can sometimes last weeks or months. In these cases, the apartments
serve as a home away from home for our craniofacial patients and their families. Our two
international fellows, who are at Medical City Dallas for one year, were also able to bring
their families and make two of the apartments their temporary homes. WCF is extremely
grateful for the generosity of Steve Sterquell, President & Executive Director of AHF, and
Shelley Levitz, CFO of Ashley Furniture Homestore.
6WORLD CRANIOFACIAL FOUNDATION
CASTING CALL FOR AMBASSADORS
The World Craniofacial Foundation is honored to announce the creation of the WCF Ambassadors.
Led by Miss Georgette Couvall of Chicago, the group will consist of former craniofacial patients
and their families and other special friends of the Foundation.
Georgette has long been an informal spokesperson for the mission of WCF and the work of Dr. Kenneth Salyer and
his colleagues in helping children who would not otherwise have had access to the specialized care they need.
Many families searching for help may not know of the existence of the Foundation - the Ambassadors will help us
by promoting community awareness of the need and of their own successes in life in spite of the difficulties
they faced. They can also act as a support network for patients or families.
We invite anyone who would like to be part of this group to contact us at [email protected]. Coinciding with
National Craniofacial Month this September, an interactive WCF Ambassadors page will be integrated onto
the WCF website.
2008 Butterfly Boogie Outshines Inaugural Year
On a chilly, late March morning in Dallas, the
sun appeared, along with 1,700 runners – one
from as far away as Kenya, raising over $61,500
for the children of WCF at the Butterfly Boogie
5K/10K. With ORIX Corporation USA returning
as Presenting Sponsor, the event experienced
miraculous growth between the Boogie’s
inaugural and second years, including
quintupling the net profit!
Luke’s Locker and other seasoned race
organizers were amazed at the astonishing
140% increase in runner participation, plus
25 registered teams compared to only one last
year. The Boogie also attracted a major athletic corporate sponsor in Under
Armour, which outfitted runners with 1,500 Boogie Tech Shirts. Coca-Cola and
Glacéau also donated a plethora of PowerAde, SmartWater and VitaminWater
to quench everyone’s thirst.
On behalf of our children, WCF and Team
Boogie would like to thank our sponsors,
volunteers, and runners for their strong
participation and gracious support in raising
community awareness and helping more
children with craniofacial abnormalities
and severe head and face trauma achieve
dramatic transformations in their lives.
Your support is our children’s strength!
Butterfly Boogie
2008 Sponsors
Holt Lunsford Commercial • Sewell Automotive
Medical City Dallas • NBC Ch. 5 • abbypiper interactive
CareFlite • Threads of Fun • Coca-Cola • PowerAde
SmartWater • VitaminWater • Velocity Sports
charlieuniformtango • Ben E. Keith • Frito-Lay
Mrs. Baird’s Bakeries • RoadID • Southwest Airlines
Texas Discovery Gardens • Dallas Running Club
Save-the-Date
Butterfly Boogie Flies Again
Saturday, March 28, 2009
www.butterflyboogie.com
7
SUMMER 2008 NEWSLETTER
DONORS
WCF extends our deep appreciation to…
An Anonymous Foundation for $25,000 to fund fellowship programs to train young surgeons and establish global
dedicated craniofacial centers.
Episcopal Church of the Transfiguration for $1,000 of general operating support to fund direct services within the
Family Care Program.
Genecov Plastic Surgery Group for $1,000 to the Craig Hall International Fellowship to fund specialized training to
plastic surgeons under the leadership of the most experienced craniofacial surgeons around the world.
Kutchins, Robbins & Diamond, Ltd. for $334 raised by their employees who donated dollars to wear jeans on Fridays.
Martelli Abogados for $5,000 towards the establishment of a dedicated craniofacial center at Austral Hospital in
Buenos Aires, Argentina.
Robert T. and Patricia Hayes for $5,000 of general operating support to fund direct services within the Family Care
Program and fellowship programs to train young doctors.
The Staubach Family Foundation for $2,500 to the Craig Hall International Fellowship to fund specialized training to
plastic surgeons under the leadership of the most experienced craniofacial surgeons around the world.
T. Boone Pickens Foundation for $100,000 to expand and purchase equipment for a dedicated craniofacial center at
Austral Hospital in Buenos Aires, Argentina.
FRIENDS OF WCF
The World Craniofacial Foundation is very grateful to everyone who provides support to us in our work with children in
need. On behalf of the children, their families, our staff and board – thank you!
Legacy Circle
Donors who have included WCF in their estate
planning.
Anonymous (2)
Bruce F. Connell, MD, FACS
First United Methodist Church of Mishawaka,
Indiana
Thomas W. Pool
Kenneth E. Salyer, MD
Mary Spencer
$100,000 and above
The T. Boone Pickens Foundation*
$50,000-$99,999
The Ray Tye Medical Aid Foundation
$25,000-$49,999
Anonymous*
Jim and Angela Thompson
$5,000-$24,999
IMCO Carbide Tool Inc.
Martelli Abogados*
Reso Foundation
Robert T. and Patricia Hayes
Tiffany & Co.
$1,000-$4,999
Anonymous
Anonymous
in memory of Jonathan Mitchel
Lisa Arbogast
Bob Baldani
E. Casey
Brian and Hope Coffman-Evans
Fred Costa
Episcopal Church of the Transfiguration
First Hand Foundation
Gatewood-Hawkins Foundation
in memory of Ben Fisch
Genecov Plastic Surgery Group**
Gary and Lynn Goforth
Sherif Lotfi
Frank and Elizabeth Mozina
Ladies Philoptochos Society of Saints Peter &
Paul Greek Orthodox Church
The Staubach Family Foundation
Ralph and Sarah Wood
$500-$999
Anonymous
Marion Stank Bason
Laurie and James Hatfield
Gary A. and Jean Palmer Heck
Jean B. King
Thomas Mehelas, M.D.
Bruce and Carol Orr*
Adeline and George Sabo
Keith and Ann M. Schoenfeld
Cynthia and Kevin Treadwell†
Loyd Walker†
$100-$499
Anonymous (3)
Anonymous† (2)
Anonymous†† (2)
Anonymous
in honor of Alex and Monica Green
Ann Abbe and Bill Harris
Janis Bailey††
Chester Baldowski
Glen Baxley
Ann Bell
in honor of Alex & Adam Mather
Susan Berg
in honor of Angela and Jim Thompson
Richard and Sue Blackwood
Francoise Brassart
in honor of Xuan Minh
Thomas Buckley††
Joseph T. Burns
Maryann Clarke
Henry and Linda Cooper
Barbara D’Agostino
Andrzej Dering
Gary and Catherine Donahue
in memory of Ashlee Finlinson
Mary E. Donahue
Stacy Duckett†
Peter Emmel††
Robert and Donna Fonck
Craig and Kathy Godwin
Rae Greenwalt
Lee and Jane Haefner
Tom and Fran Halbouty
Steven Handel††
Dan and Pam Hann
James Hayes††
Terri and Robert Hayes
Steve Hertel
Kristi Higham
Jim and Diane Hobson†
Jane J. Hoffman
George Hughes
in memory of Barbara June Hughes
Mr. and Mrs. W.L. Hughes, Jr.
Simon and Alissa Isanhart
Paul and Rose Mary Jackson
Lisa Jansta
Lidana Jalilvand
Gary and Mary Jefferson†
N.A. Johnson
Employees of Kutchins, Robbins & Diamond, Ltd.
Dana Kuykendall†
Constantine L. Lagakis
Gerald I. Lavery
Robert Lenhardt
in honor of Angela and Jim Thompson
Harold Lewis
Beth and Neal Lilly
William Massey††
Michael R. and Aleece McBay
Rob and Kristen McConnell†
Mr. and Mrs. David McMurray
Dallas and Joanne Miller
Roy Baker Moran
Anita Mottola
Mark Muskardin
Robert and Julie Nickell
Khanh P. Nguyen
Pat O’Brian
Mrs. Joan B. O’Donnell
Lloyd and Barbara Pellegrin
Robert L. Pinski
Susie and Mike Powell
QuikTrip
Arthur Rigg
Frances Ring
Nula and Todd Rutherford†
RVOS Farm Mutual, Lodge 142, Dallas
Salon Nula & Co.†
Mrs. Laurene Salyer
Mary E. Schultz
in honor of Mrs. Frank A. Schultz
Frank W. Shock, Jr., DDS
Mark and Patricia Spaeth
Michael Steig
Lynda and Anthony Stevens††
Jeffrey Toler†
Solange Trombini
Margaret Tyarks
John and Annette White
Herbert T. Wright†
Up to $99
Anonymous (19)
Anonymous† (2)
Anonymous
on behalf of Cole Adams
Anonymous
in memory of Colin Watson Jones
Eva Albers
Gil Apodaca††
Ken and Tammy Baker
in memory of Colin Watson Jones
Roger and Mary Bauer
Jo Ann Martin Baumgartner
Drew and Laura Beth Baxter†
Mrs. Lois Binns
in honor of John Binns
Riccardo Biscossi
Bistro by Jenn/Jenn Sohonie
in honor of Mr. and Mrs. Tim Ryan
Kazimiera and Jozef Bladek
Charles Bloyer
Michael and Marsha Bonk
Mr. and Mrs. R.E. Boswell
Alan and Sandy Brandon†
Ev Brookbank
Kathryn and Charles Brown
Pat and Dennis Canaday
in memory of Amily Grace McAloon
Rosalind P. Childe
Carole S. Chowen
George and Nadine Cirka
in honor of the Dogaru family
Paul Creson
Nancy Darley
Douglas and Gretchen Davies
Billy Day
Josiane de Angelis
Bobbie and B.L. Doan
Anastasia C. Doerr
Edward and Madeline Drobinko
Pierre Dube††
Dee Duhe
Marilyn Dunn
Audrey N. Durfee
Margie D. Emmins
Keith and Kim Fawks
Jane Finger
on behalf of Joshua Moore
Mary C. Fisher
Peter and Evonne Fletcher
Robert and Rosemary Flynn
Rosemarie Foltz
If you prefer to receive this newsletter and updates via email or want to be removed from the mailing list, please email [email protected].
“The Mission of the World Craniofacial Foundation is to give help, hope, and healing to people with craniofacial abnormalities and their families.”
ADDRESS SERVICE REQUESTED
Phone 800.533.3315
Fax 972.566.3850
Web www.worldcf.org
7777 Forest Lane, Suite C-621
P.O. Box 515838
Dallas, Texas 75251-5838
NONPROFIT ORG
US POSTAGE
PAID
DALLAS, TX
PERMIT NO. 1073
DONORS CONTINUED...
Ben and Lynne Godbold
Dave Goldstein
Martha R. Golla
Keith Graham
in honor of Angela and Jim Thompson
Amy Gray
Audrey Graziano
in honor of Kristen Berg
Earl and Jean Green
Loredana Gregori
Joseph and Florence Gries
Helen Hall**
in memory of Elmer Reinisch
Halliburton
Jerry Haney
B.R. Hardesty
David A. & Joan L. Harner
Charlotte Herr
Melissa Herr††
Arby and Lynn Holbrooks
in memory of Colin Watson Jones
Weldon and Peggy Holbrooks
in memory of Colin Watson Jones
Jo Ann Jones
in memory of Colin Watson Jones
Leon and Patty Kaplan
William E. and Carolyn Kashman
Bradley Keller††
Joseph Kelly††
Anna Kennedy
Richard and Audrey Killmon
Francis and Maureen King
Mary Koresko
Sunder Krishnan†
Linda LaBarge
Baiba Liepins
Arthur and Edith Lynch
Catherine and Joseph Maderak
Michael and Lisa Mahady
Lissa Malley
Irene Martin
Barbara Mazza
Frances McCleskey
Tom and Shirley McDonnel†
Raymond and Maria Medina
Shuchi Mehta
Michael and Wanita Miller
Ryan Mortensen
in honor of William Cole Adams
Marilyn I. Nardone
Luciano Nigro
Patrick and Kathryne O’Donnell
Rochelle Packard
Patricia Marie Padilla
Susan and David Parker
Mrs. Clara B. Pascar
George H. and Mary G. Perich
Steve and Lori Plamondon
RAE Storage Battery Company
Kathleen and Charles Ramsay
Waun and Patricia Reed
Robert J. and Jane Reilly
Kaitlyn Revilla
Pam Rodgers†
Xiomara Rodriguez
in honor of Alex and Monica Green
Ari Rytsy
Safeway
Gema Sahuquillo
Daniel and Lidia Sanchez
LuAnne Sauter
Jack Schofield
Joseph Senkovich
Stacy R. Shilling†
Lou and Sandy Silva
Manfred and Diane Snook
Alex Spaeth
Arren Spence
Stanley J. & Doris Fenvessy Foundation
Andy Sukramani
Sutton Sweitzer
William and Myra Terrell
Vernon and Susan Tise
Joyce E. Tomanek
Thomas H. Vanvoorhis
Kristen Whitehurst
in memory of Amily Grace McAloon
Reinhardt L. and Barbara Geary Willig, Jr.
Cynthia Wilson††
Loretta and George Winters
Bill and Sherryl Wothke
Mary Yocco
in memory of Mathew
Matching Gifts
Allstate
BP Foundation
Microsoft
Pfizer Foundation
Verizon Foundation
* Capital Campaign
** Craig Hall International Fellowship
† Lexie’s Smile
†† Taylor Wilson Foundation
Every effort has been made to ensure the accuracy of our donor list, which includes gifts from January 1 through June 20, 2008.
Please notify us at 972.566.2497 or [email protected], if there is an error. Thank you!
WAYS TO HELP
Wish List
Community support enables the World Craniofacial Foundation to provide help, hope and healing
to craniofacial patients and resources for their families. The need is great and there are different
opportunities available for everyone to help. Please contact Rebecca Rhule at 972.566.2497 or
[email protected]. On behalf of the children we serve, thank you!
Air miles; hotel &
gas vouchers;
Wal-Mart gift cards;
network printer/copier;
all-in-one copier/fax/
scanner; phone
cards
Cash, Check or Credit Card • Honorariums/memorials • Pledges & Recurring Gifts • Wire Transfer
Matching Gifts • Planned Giving • Stocks & Bonds • IRA Deductions • Grocery Shopping • Online Services & Communities
UPDATE!! IRA Charitable Rollover
The IRA charitable rollover was a tax incentive in effect in 2006 and 2007 that
expiring tax provisions, including an extension of the IRA Charitable Rollover and other
allowed individuals aged 70 and older to donate up to $100,000 from their IRAs to public
charitable giving incentives. WCF encourages you to contact your congressman and ask
charities without incurring ordinary income taxes, a measure extremely beneficial to
him/her to pass the extension of the IRA Rollover and other charitable giving incentives.
those who do not itemize their deductions. Because the provision expired on December
31, 2007, it will take Congressional action to restore it.
On June 16, the Senate failed to end debate on a procedural motion to proceed to
the House-passed bill, H.R.6049, which would provide a one-year extension of expired or
DONATE ONLINE NOW
www.worldcf.org