PATIENT NAVIGATION - Ulmanfund.org

Transcription

PATIENT
NAVIGATION
Quarterly Report
2014
PROGRAM OVERVIEW
The Ulman Cancer Fund’s (UCF) Adolescent and Young Adult (AYA) Patient Navigation program provides one-on
-one support, direct services, and tailored programs and resources to AYAs to ensure they never feel alone during
their cancer experience. Working in conjunction with each Cancer Center’s multidisciplinary medical care team,
our Patient Navigators assist patients in managing their own cancer journey. They serve as a friendly voice, a
cheerleader and a supporter, helping AYAs navigate the unique medical, emotional, financial, educational, and
physical needs they have during treatment and into survivorship.
While UCFs Patient Navigation program provides core services, our Patient Navigators tailor the program to each
institution based on their patient population and varying needs.
Children’s National Medical Center (CNMC) is a 283-bed
general facility and teaching hospital located in Washington, DC. There are approximately 14,000 admissions
annually, with about 5,000 inpatient and 11,000
outpatient surgeries. The hematology and oncology
unit, where the UCF Patient Navigator is located, is a
37-bed floor, treating patients from infant to 29 years
of age. Patients do not receive radiation at CNMC.
The partnership between the UCF and CNMC resulted
in the placement of an AYA patient navigator at CNMC
in December 2013. The position is currently funded by
the Shearer Family in memory of their daughter, Jacqueline
Shearer, as part of the Jacqueline Shearer Memorial Fund.
For more information on Jacqueline and her story, please
visit http://ulmanfund.org/donate/the-jacquelineshearer-memorial-fund/jacquelines-story/
Greater Baltimore Medical Center (GBMC) is a 255-bed
medical center (acute and sub-acute care) located in
Towson, MD that sees over 26,700 inpatient cases annually.
The Malcolm and Sandra Berman Cancer Institute at
GBMC provides comprehensive, multidisciplinary cancer
care that combines leading specialists with state-of-the
-art technology. GBMC is one of the largest community
hospitals in the mid-Atlantic region with over 1,300
physicians and 1,100 nurses serving on its medical staff.
The UCF and GBMC partnership began in 2011 and
resulted in a part-time Adolescent and Young Adult
(AYA) Patient Navigator. At GBMC, the Patient Navigator
works closely with physicians, nurses, social workers
and administrators to support young adults in treatment.
The Johns Hopkins Hospital’s Sidney Kimmel Cancer
Center is an NCI-designated comprehensive cancer
center in Baltimore, MD. It is the only comprehensive
cancer center in the state. UCF’s Adolescent and Young
Adult (AYA) Patient Navigator is housed within the Kimmel
Cancer Center’s Department of Pediatric Oncology.
The innovative partnership between UCF, the Department
of Pediatric Oncology and the Kimmel Cancer Center
launched in January 2012. A UCF-funded AYA Patient
Navigator, who serves patients 15 to 25 years old
within pediatric oncology, is the centerpiece of this
partnership. The AYA Patient Navigator works in
conjunction with the Cancer Center’s multi-disciplinary
team to assist patients and their families through:
individual/family counseling, fertility preservation guidance,
resource activation for housing, transportation, and
other cancer treatment-related needs, financial assistance,
and community/social support.
The University of Maryland Marlene and Stewart Greenebaum Cancer Center (UMGCC) is a National Cancer
Institute (NCI)-designated cancer center located in
Baltimore, MD. At UMGCC, young adult patients receive
direct navigation services and support throughout the
medical center on the three adult inpatient oncology
units, in Stoler Pavilion (Infusion Center and Outpatient
Clinic), Radiation Oncology and Pediatric Oncology.
Since the program’s inception in 2008, UCF’s AYA Patient
Navigation program has provided direct services and
resources to young adults and their families living with
and surviving cancer. As part of an academic medical
community, the UCF Patient Navigator works with the
University of Maryland School of Law and Dentistry.
AYA patients are served directly in the community through
a variety of supportive services such as home visitation,
resource coordination and accompanied visits to
social services.
Walter Reed National Military Medical Cancer (WRNMMC)
is the Nation’s Medical Center, proudly serving military
beneficiaries in the Washington, D.C. area as well as
those from across the country and around the globe.
The Murtha Cancer Center at WRNMMC is a modern,
patient-centric, tri-service military healthcare facility.
As the only DoD Cancer Center of Excellence within the
Military Health System, the Murtha Cancer Center offers
its patients access to cutting-edge cancer diagnostic
and treatment technologies.
UCF and WRNMMC officially launched the placement of
an Adolescent and Young Adult (AYA) Patient Navigator
in May 2013. The Patient Navigator works closely with
the Cancer Center’s multidisciplinary team to support
our AYA service members, and their families, that are facing
a cancer diagnosis. The UCF Patient Navigation Program
offers a unique approach to military readiness by providing
direct support and access to resources tailored
specifically to AYAs within the Uniformed Services.
Our UCFs Remote Patient Navigation Program helps
adolescents and young adults (AYAs) faced with a
cancer diagnosis make sense of it all. We are a friendly
voice, a cheerleader and a supporter as you and your
loved ones fight cancer and embrace survivorship.
UCF offers Remote Navigation services through telephone
and email communication support out of our Baltimore,
MD office. This one-on-one support is a free service that
is AYAs, and their loved ones, at any stage in their
cancer diagnosis and from anywhere in the country. For
young adults who live local to the Baltimore area, our
Remote Patient Navigator can also provide in-person
one-on-one support at our offices or onsite at a hospital.
AYAs and their families may access our Remote Navigation
services by calling 1-888-393-FUND ext 105 or
emailing Julie Lanahan at [email protected].
Meet Our Team!
For full bios of our patient navigation team, please
visit http://ulmanfund.org/meetourteam/
PATIENT NAVIGATORS
Allie Isaacson
Adolescent and Young Adult Patient Navigator Children’s National Medical Center
Alexandra Gubin, MSW, LCSW-C
Adolescent and Young Adult Patient Navigator –
Johns Hopkins Hospital
Meghan Fitzgibbons, MSW, LGSW
Walter Reed National Military Medical Center
Allie is UCFs AYA Patient Navigator at Children’s National
Medical Center in Washington, DC. Allie is housed in
the Teen Room on 4 East in the Center for Cancer and
Blood Disorders. In addition to providing core patient
navigation services, Allie manages the Teen Room and
plans monthly social events for AYAs on the floor to
meet each other and connect. Allie works closely with
child life specialists and the nursing team to ensure
that AYAs at CNMC have access to age-appropriate
resources and activities.
Allie is UCFs AYA Patient Navigator at Johns Hopkins
Hospital’s Sidney Kimmel Cancer Center. At Johns
Hopkins, Allie works with all AYAs ages 15 through 25
treated inpatient and outpatient within the pediatric
oncology department. As a licensed clinical social worker,
Allie provides supportive counseling related to issues
such as fertility preservation, communication strategies to
ensure quality of care, coping strategies that help patients
adjust to their illness, and survivorship-related issues.
Meghan is UCFs AYA Patient Navigator at Walter Reed
National Military Medical Center’s Murtha Cancer Center
(American Building). Meghan’s work with AYAs spans
between all outpatient adult oncology clinics, as well
as Pediatric Hematology Oncology, and the inpatient
oncology wards. In addition to the core services of the
Patient Navigation program, Meghan facilitates the young
adult cancer support group at Walter Reed and helps
young adults treated at Walter Reed balance their cancer
diagnosis and life in the military.
Mary Sharon Curran, RN, MS
Greater Baltimore Medical Center
Elizabeth Saylor, MSW, CPN
University of Maryland
Julie Lanahan, MA
Adolescent and Young Adult Remote Patient Navigator –
UCF Offices
Sharon is the UCFs AYA Patient Navigator at Greater
Baltimore Medical Center and a Clinical Associate
Professor of Nursing at Towson University. She brings
her experience as an educator and psychiatric and
mental health nurse to her Patient Navigation role by
providing psychological and emotional support to AYAs
and their families from the time of diagnosis, through
their treatment and survivorship. Sharon also supports
AYAs affected by cancer on the Towson campus and
co-founded the Institute for Well-Being’s Cancer Wellness
Program and Art Therapy Program. As a parent of a
young adult survivor, she has a uniquely personal
perspective in helping parents of AYA cancer patients.
Elizabeth is UCFs AYA Patient Navigator at the University
of Maryland’s Greenebaum Cancer Center. She works
with AYAs and their families throughout the Cancer Center,
but primarily those seen in Stoler Pavilion (Infusion
Center and Outpatient Clinic), Radiation Oncology and
Pediatric Oncology. She also supports inpatient cancer
center units as well as bone marrow transplant Units.
Julie is UCFs AYA Remote Patient Navigator. She is based
out of the Baltimore, MD office and works with AYAs
affected by cancer in the local community as well as
nationally through phone and online support. A young
adult breast cancer survivor herself, Julie offers a unique
perspective having been on the patient side as a
young adult. In addition to the core services provided
by remote Patient Navigation, Julie organizes UCFs
young adult quarterly social events and oversees UCFs
scholarship program.
She brings her experience as an educator, community
outreach worker, researcher, and survivor of childhood
cancer to her role as a Patient Navigator, particularly
when supporting young urban families from medically
underserved communities. At UMGCC, Elizabeth serves
on the multidisciplinary Patient Education Committee
representing the AYA voice. Elizabeth received her
certificate in Patient Navigation from the Harold P.
Freeman Institute and has served on numerous committees
including the Maryland Comprehensive Cancer Control
Plan and the LIVESTRONG Young Adult Alliance.
Children’s National Medical Center
STATISTICS FROM Q3
Number of patients seen
47
Average age of patients
17
!
Direct Services Provided to Patients
Connections to other adolescents
and young adults
Family and home life adjustment
Normalization during treatment
Platforms to prevent social isolation
Returning to work or school
after cancer
Number of new patients seen
26
Types of cancer*
13% Sarcoma
(Bone, Ewings, Rhabdomyo)
4% Acute Leukemia
4% Brain Cancer
4% Kidney Cancer
4% Microcytic Anemia
70% Other Blood Disorders
Gender split of patients
65% Male
15% Female
20% Unrecorded
Cancer Trajectory
78% Active treatment
7% Relapses
4% Recently Diagnosed
11% Unrecorded
Race / Ethnicity of patients
85% Black or African American
15% Caucasian / Non-Hispanic White
*Percentage numbers are rounded to nearest whole
Location
50% Maryland
40% Prince George’s Country
5% Montgomery County
5% Southern Maryland
(Charles, Calvert, St.Marys)
10% Washington, DC
5% Northern Virginia
20% Other
15% Unrecorded
Children’s National Medical Center
PROGRAM HIGHLIGHTS
Hosted a “Meet and Greet” with the cast of the Lion King
musical for patients and their families with a question and
answer session (how did they get started as performers, what
as the funniest moment that has ever happened on stage,
etc.). Afterwards, held a movie viewing with snacks and gift bags.
Provided video game consoles, games, and movies to teen
and young adult patients on isolation and patients in
bone-marrow transplant (BMT). These patients are unable
to go into the Teen Room and appreciate having something
to do while on isolation.
Hosted a “Divergent” (popular Teen book series) party in the
Teen Room where teens took faction quizzes, ate cakepops,
and watched the “Divergent” movie.
Attended the OMG EAST event hosted by Stupid Cancer and
exhibited on behalf of the UCF.
Continue to keep the Teen Room open on a regular basis
for teens and young adults to visit and spend time out of
their rooms.
Worked with the UCF team to host an outpatient event – a
Nationals baseball game – for teens and young adults and
their families.
Continue to foster relationships between patients by hosting
more teen and young adult-appropriate activities in the
Teen Room such as Monopoly, Wii game tournaments,
and Origami lessons.
HOW WE CHANGE LIVES
Christa 25, Osteosarcoma
Christa is a 25-year old patient at Children’s National. As one of the older patients at a pediatric hospital, Christa
really appreciates having a patient navigator here that has knowledge about young adult issues. Christa
frequently uses the nail polish, DVDs, and Wii games in the Teen Room. She also looks forward to outpatient
events with Walter Reed so she can meet others her age. Christa’s favorite event at the hospital so far has
been the Lion King cast visit. Christa is an actress and singer and loved hearing about their experiences on
stage. She even got an email address and plans to keep in contact with one of the cast members!
Christa also served as a guest blog “responder” to UCFs #facingtheissues post, The Chemo Side Effect Check
List, highlighting a few side effects of chemo she faced as a young adult.
Greater Baltimore Medical Center’s Sandra and Malcolm Berman Cancer Institute
STATISTICS FROM Q3
60**
Average age of Patients
34
!
Connection to other AYAs
Enhancement of social
support network
One-on-one support for patient
and caregivers
Resource coordination
20
Types of cancer*
60% Breast
15% Ovarian
5% Hodgkin’s Lymphoma
5% Melanoma
5% Non-Hodgkin’s Lymphoma
5% Testicular
5% Thyroid
90% Female
10% Male
Cancer Trajectory
100% in Active Treatment
**Patient Interactions
Location
100% Maryland
55% Baltimore County
20% Baltimore City
15% Anne Arundel County
5% Carroll County
5% Harford County
Greater Baltimore Medical Center’s Sandra and Malcolm Berman Cancer Institute
PROGRAM HIGHLIGHTS
Connected with Bay West Endocrinologist at GBMC and
initiated support to young adult cancer patients (mainly
thyroid cancer) in that practice.
TESTIMONIALS
Accepted to present at The Academy of Oncology Nurses
and Patient Navigators on the collaboration between the
UCF Patient Navigators, the treating medical oncologists in
the clinical sites served by the UCF Patient Navigation, and
the Towson University’s Institute for Well-Being, on the Cancer
Wellness Program.
Supported and advocated for young adult patients and their
families to include assisting patient with communication needs
and concerns they have when addressing the oncology team
Connected young adult patients to peer support with other
young adult cancer patients or survivors.
Assisted patients and families to identify quality of life issues
and how they might best achieve maximum quality of life
in the context of their cancer experience
Sustained therapeutic support provided to patients overtime
through diagnosis, treatment and into survivorship
Served as a resource to the GBMC oncology staff related
to young adult-specific patient and family psychosocial
needs
Invited a young adult thyroid cancer survivor and a GBMC
Milton Dance Head and Neck Cancer Patient Nurse to
speak to the UCF staff on the topic of “Compassion Fatigue”.
Represented the UCF at the GBMC Legacy Chase Event in
the Survivorship Tent.
Continue to work with Towson University’s Institute for Well
-Being on their Cancer Wellness Program, which is a free
program offered to cancer survivors in the Baltimore Metro
Area. Referrals of cancer patients and survivors to the program
occur via the partnership between the UCF Patient Navigator,
the treating oncologists in the clinical setting, and
Towson University.
Patient Story
Sharon has provided support to a 33 year-old patient
with ovarian cancer who was diagnosed while pregnant
with her third child. She delivered a healthy daughter,
but now is the mother of an infant and two young
children undergoing intensive chemotherapy. She is
genuinely very positive, although recognizes the need
for emotional support and is very open to the support
offered by the UCF, specifically by Sharon in the
role of young adult nurse patient navigator. Through
introductions facilitated by Sharon, she has connected
with other young adult patients at GBMC, supporting
one another during infusions. These connections at
GBMC have positively enhanced her cancer experience.
Lisa Kight, RN
Sandra & Malcolm Berman
Cancer Center at GBMC
I have been having the pleasure of working with Sharon
collaboratively with young patients that are being seen
for their cancer treatments at GBMC. Sharon is a kind,
compassionate and understanding part of our nursing
team who helps us understand the struggles that our
young patients and their families are dealing with. She
offers our patients support from the very beginning of
their cancer journey, regardless of what their needs are.
Sharon is very accessible and is always following through
with her patients, even if they have completed their
treatment. As the mother of a young adult cancer
survivor, she has great insight on the stessors of the
patient and their family during treatment. Sharon has a
dynamic personality and we really enjoy working with
her from both a personal and a professional stand point.
Johns Hopkins Medicine’s Sidney Kimmel Comprehensive Cancer Center
STATISTICS FROM Q3
40
19
!
Implications of treatment
Communication with clinical team
Returning to work or school
Support for caregivers
10
Types of cancer*
50% Sarcoma
23% Acute Leukemia
8% Brain Cancer
3% B Cell Lymphoma
3% Chronic Leukemia
3% Burkitt’s Lymphoma
3% T Cell Lymphoma
3% Other Blood Disorder
67.5% Male
32.5% Female
Cancer Trajectory
78% Active Treatment
5% Relapse
3% Off Treatment < 1 Year
5% Asian
3% Hispanic
3% Middle Eastern
Location
80% Maryland
13% Baltimore City
13% Howard County
10% Frederick County
8% Anne Arundel
5% Harford County
3% Caroll County
3% Cecil County
5% Florida
3% Indiana
3% Pennsylvania
3% Virginia
3% No Formal Place of Residence
3% International
Johns Hopkins ’s Sidney Kimmel Comprehensive Cancer Center
PROGRAM HIGHLIGHTS
Participated in a filmed interview for Teen Cancer America’s
upcoming documentary on the experience of adolescent
and young adult cancer in the United States. Highlighted
UCF’s adolescent and young adult patient navigator role at
Hopkins and the partnership between UCF and Hopkins.
Promoted UCF quarterly social activity (Orioles game) to
patients and families and secured attendance at the game.
Guided multiple patients in a discussion about fertility risk
of treatment as well as preservation options. Provided
the appropriate resource information and next steps.
Continue to serve as an integral part of fertility preservation
efforts of adolescent and young adult cancer patients in
Pediatric Oncology at The Johns Hopkins Hospital.
On behalf of Ulman Cancer Fund, managed its “Mission to
Vine,” a run to raise awareness for young adults with cancer,
Facebook group, for patients and runners to connect with
each other during the run.
Patient navigator secured clinical licensure in social work.
Participated in discussions between UCF and Hopkins about
potential partnership for walking program.
PHOTOS
Ashley F., 22, Angiosarcoma
The University of Maryland’s Marlene & Stewart Greenebaum Cancer Center
STATISTICS FROM Q3
43
Age range / Average age of Patients*
21
!
Support in family and home life
during and after treatment
Connetion to community mental
health services while in treatment
Resources for returning to
work or school
26
62% Male
38% Female
Race / Ethnicity of patients*
4% Middle Eastern
Types of cancer*
25% Acute Leukemia
21% Hodgkins Lymphoma
13% Breast Cancer
8% Head / Neck Cancer
8% Non-Hodgkins Lymphoma
8% Sarcoma
4% Aplastic Anemia**
4% Brain Cancer
4% Colorectal Cancer
4% Melanoma
Cancer Trajectory
17% Relapse
4% Long-Term Off Treatment (>2 years)
3% Off Treatment (< 2 Years)
Location
92% Maryland
21% Baltimore City
13% Howard County
8% Frederick / Carroll County
4% Harford / Cecil County
4% New York
4% Pennsylvania
The University of Maryland’s Marlene & Stewart Greenebaum Cancer Center
PROGRAM HIGHLIGHTS
With Union Memorial’s ART lab closing, identified a new
solution for fertility preservation for young adult male
oncology patients at UMGCC. Elizabeth worked with CryoChoice to develop a process for young adult patients and
facilitated two sperm bankings under this new process. For
one patient, Elizabeth was able to guide the patient
through the new process with CryoChoice within a timeframe
of two days after learning Union was closing.
Served as conduit between an out-of-town relative of a
young adult patient and the medical team. Elizabeth
coordinates family meetings when the relative comes to the
Baltimore area for work and has connected this relative
with key people on her cousin’s medical team.
Located a patient lost to follow-up through social media.
Working with medical team at UMGCC, re-engaged him
in his care and helped him find a medical team in the state
where he has moved.
Engaged a young adult cancer survivor, UCF summer intern,
and UCF scholarship winner to volunteer at UMGCC. This
young man is especially helpful with young male patients
in their earlytwenties as a peer mentor and openly shares
the ups and downs he faced having cancer in college.
Patients are responding well to his peer support.
TESTIMONIALS
Linked a young female patient with compromised fertility,
interested in learning about adoption, to a former UCF
board member who is a survivor and recently adopted.
Connected a patient living with cutaneous lymphoma with
the Cutaneous Lymphoma Foundation. She was able to
watch videos of other survivors and talk to the executive
director who is also a survivor. Before this connection, this
young woman had not met anyone in her several years of
treatment with this condition.
Continue serve as a co-investigator with the University of
Maryland Clinical Pharmacy Department and School of
Pharmacy on a research evaluation of young adults’ adherence
to oral chemotherapy.
Explored a potential partnership with Medifast’s Take Shape
for Life Program and Dr. Dee Garcia, a health coach for
Medifast and former radiation oncologist, to better serve
young adult off-treatment survivors who are at risk for
developing health complications due to obesity.
Carla, Hodgkin Lymphoma &
Stem Cell Transplant Survivor
Family means a great deal to me. When my hair was
falling out again, my brother, along with my nurse,
helped me to shave my head. Then to show his support,
Juan shaved his own head!
My family can’t always be here though and it is really
nice to have Elizabeth to talk to. She has been a good
listener and provided me with books for my young
children so that they can better understand what is
happening to me.
Elizabeth has also assisted me in setting up
transportation and learning about resources
to help pay medical and housing bills.
Walter Reed National Military Medical Center’s John P. Murtha Cancer Center
STATISTICS FROM Q3
84
28
!
Communication with clinical
care team
Connection to other AYAs
Family and home life during and
after treatment
Implications of treatment
Understanding treatment protocols
41
58% Male
42% Female
47% Caucasian/Hon-Hispanic White
8% Hispanic White
5% Asian
3% Native Hawaiian or Other
Pacific Islander
3% Mixed Race
13% Other
3% Unrecorded
Types of cancer*
21% Breast Cancer
16% Brain Cancer
11% Acute Leukemia
11% Non-Hodgkin’s Lymphoma
8% Sarcoma
(Bone, Ewings, Rhabdomya)
5% Head / Neck Cancer
5% Melanoma
3% Cervical Cancer
3% Chronic Leukemia
3% Esophageal
3% Neuroedocrine
Cancer Trajectory
13% Off Treatment (< 2 years)
5% Relapse
Location
48% Maryland
11% Southern Maryland
(Charles, Calvert, St.Marys)
5% Eastern Shore
(Kent, Queen Anne’s, etc.)
3% Baltimore County
27% Walter Reed Base
19% Virginia
3% New York
3% Washington, DC
Walter Reed National Military Medical Center’s John P. Murtha Cancer Center
PROGRAM HIGHLIGHTS
We engaged ten Walter Reed patients in off-base social
activities this quarter, including Jazz in the Garden, an early
evening concert where attendees picnic, mingle and enjoy
music, and a Nationals baseball game. Patients who attended
the baseball game got the see the Nationals’ first no-hitter!
The patient navigator worked with the Fairfax Cryobank to
set up a referral and direct billing process to make sperm
banking easier for young adult male patients. The Ulman
Cancer Fund is now set up to cover patients’ consultation
fees for fertility cryopreservation.
Nine Grant Thornton summer associates delivered more
than twenty chemo care bags, which they had assembled
in June, to inpatients and outpatients at Walter Reed.
As part of the planning committee for the 2014 Young Adult
Survivorship Conference, the patient navigator assisted
with logistics and set up a pre-conference bowling activity.
A young adult support group, facilitated by the pediatric
social worker and UCF patient navigator, was started in late
July. The group meets every other week, discussing topics
from side effects and complementary medicine to mental
health issues and relationship dynamics. We average between
four and nine attendees at each meeting.
The patient navigator joined the Citywide Patient Navigator
Network. Its mission is to increase access to quality cancer
care by supporting the profession of patient navigation and
its sustainability in the DC metropolitan region.
A resource shelf with information specific to young adults was
created and placed in the hematology-oncology treatment room.
Attending the 2014 Oncofertility Consortium, the patient
navigator learned about new technology and techniques
for fertility preservation and networked with professionals
from around the country.
TESTIMONIALS
Zach is pictured here at Bowlmor in Bethesda, MD, taking
part in the Young Adult Survivorship pre-conference event.
Zach’s score of 170 blew everyone else’s out of the water!
Zach, Brain Cancer
During the Jazz in the Garden event, it came to light
that Zach, a 20 year old brain tumor patient, had
planned to go on a White House tour but would have
to miss it due to his chemotherapy schedule. Zach
had recently spent a great deal of time as an inpatient
and had looked forward to spending some time
sight-seeing in Washington, DC. One of UCF’s board
members, who connected with Zach and his mother
that evening, was able to set up a private tour of the
White House before Zach’s next chemotherapy
cycle began. This meant a lot to both Zach and his
mother and they were grateful for the efforts of
the UCF team to provide this unique experience.
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Remote Navigation
STATISTICS FROM Q3
19
27
!
Financial Assistance
Connecting to other AYAs
19
79% Female
21% Male
63% Caucasian/Hon-Hispanic White
13% Middle Eastern
Types of cancer*
42% Breast Cancer
11% Ovarian Cancer
5% Acute Leukemia
5% Bladder
5% Chondrosarcoma
5% Hodgkins Lymphoma
5% Kidney
5% Non-Hodgkins Lymphoma
5% Thyroid Cancer
Cancer Trajectory
17% Off Treatment (< 2 years)
6% Off Treatment (> 2 years)
Location
17% Maryland
12% California
11% New York
6% Arizona
6% Florida
6% Kansas
6% Pennsylvania
6% Nevada
6% Rhode Island
6% Tennessee
6% Texas
6% International
11% Unknown
Remote Navigation
PROGRAM HIGHLIGHTS
Developed standardized patient packets to be distributed
when an onsite or remote UCF’s Patient Navigator meets or
connects with a patient or family. Standard materials include:
UCF patient navigation rack card
UCF program rack cards (Cancer to 5K,
Helping Others Fight, etc.)
UCF general brochure
List of young adult specific resources
List of “Things to Consider” for young adult
diagnosed with cancer
Copy of Patient Resource Guide’s
Cancer Survivorship issue
Revamped UCFs Remote Patient Navigator program to
encompass additional opportunities to support young
adults affected by cancer in the local community an on a
national level. Began outreach to local hospitals to offer
remote patient navigation and other direct support services
Represented young adults affected by cancer at GBMC’s
Legacy Chase event as part of the survivor tent in
September 2014
Collaborating with Patient Resource Guide to develop a
16-page Young Adult Cancer issue
Developed a standard referral process for young adults
and loved ones referred to UCF for support
SCHOLARSHIPS
There will be 30, $2500 scholarships anticipated for
2015-2016 school year. New Scholarships include:
Ryan Hanley Honrary Scholarship renamed to Jamie Roberts Memorial
Scholarship (Six scholarships will be awarded by 4K teams)
John Duvall Memorial Scholarship (New)
Olivia Marquart Scholarship (New)
Jeffrey P. Meyer Memorial Scholarship (New)
Vittoria Diana Ricardo Memorial Scholarship (New)
PHOTOS
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PATIENT NAVIGATION - Ulmanfund.org

Transcription

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