Conference Brochure - Institute for Patient- and Family

Transcription

With leadership support from
june 4 – 6, 2012 • the omni shoreham hotel • washington, dc • www.ipfcc.org
Partnerships with Patients and
Families to Enhance Quality and Safety
WASHINGTON, DC provides a dynamic backdrop for
The 5th International Conference on Patient- and FamilyCentered Care: Partnerships for Quality and Safety. The
nation’s capital is recognized as the most historic and influential city in
the United States…where the passion of the past meets the promise of
the future. Here, inspiration is nurtured, innovation is celebrated, and
partnerships are formed.
And, here is where those who are determined to improve the safety, quality,
and experience of health care will come together June 4–6, 2012 to share
exemplary programs dedicated to authentic collaboration among patients, families, health care professionals, and policy
c o n f e r e n c e
ov e r v i e w
specialists. This International Conference offers an exciting program that will guide, inspire, and motivate you.
Now is an important time to be
involved in improving health care.
These demanding times require
inspired leadership, innovative
solutions, and enduring partnerships to
bring about change.
The 5th International Conference on
Patient- and Family-Centered Care:
Partnerships for Quality and Safety will
offer patient- and family-centered
strategies that address the increasing
challenges in health care such as rising
costs, fluctuating patient satisfaction
scores, and delivering safe and quality
care for each and every patient—
reducing readmissions, decreasing
infections, and providing safe
care transitions.
International experts and innovators
will examine patient- and familycentered approaches and best practices
to help guide your organization in
developing stronger partnerships with
patients and families on every level.
Participants will learn cutting-edge
innovations that improve the health
care experience and keep patients from
getting injured or sicker, and help them
heal without complications.
The Institute for Patient- and Family-Centered Care is
grateful for the leadership support of the Samueli Institute
and the Picker Institute for helping to bring this conference
to DC. We are proud to partner with these exemplary
organizations and to highlight their significant work in
advancing the practice of patient- and family-centered care.
We are also grateful to the following organizations for
providing conference program support:
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In addition to the strong programming
featuring best practices in patient- and
family-centered care initiatives from
programs around the U.S. and the
world, the Institute for Patient- and
Family-Centered Care is partnering
with two innovative non-profit
organizations that focus on improving
health care:
•The Samueli Institute will present
a series of sessions that highlight
effective strategies for creating,
implementing, and evaluating
mind-body programs and practices
within a patient- and family-centered
context. Experts in mind-body skills,
program evaluation, and patientand family-centered care and
program delivery will lead discussion
panels and showcase exemplary
programs; and
•The Picker Institute will present
the Picker Patient Experience Series
which identifies seven presentations,
including the Picker Lecture by
Dr. Don Berwick, and several
posters that depict innovation in
patient-centered care, emphasizing
partnerships with patients and
families in health care. Several
featured presentations are Picker
Institute’s 2011/2012 Always Events®
Challenge Grant Recipients that
address two key thematic areas
of focus for Always Events®—
communication and care transitions.
Whether you are in the early stages
of implementing the practice of
patient- and family-centered care, or
further along in your journey, this
international conference offers an
exciting program that will expand
your knowledge, enhance your skills,
and inspire you with innovations
to become an even more effective
change-agent in health care.
We invite you to join us in
Washington, DC at The 5th
International Conference on Patientand Family-Centered Care to learn
from leaders around the world.
Conference
Programming
Sessions will feature a variety of
innovative and successful programs
dedicated to collaborative efforts with
patients and families. Significant
numbers of patient and family
leaders—who have extensive
experience in partnering with health
care professionals—will assemble with
health care administrators, clinicians,
medical educators, researchers,
architects, and others from across
the United States, Canada, United
Kingdom, Australia, and other
countries.
Presentations during the
conference aim to provide
the most current insights
and strategies in advancing
the practice of patient- and
family-centered care. More than
100 sessions and 85 posters
represent the most innovative
patient- and family-centered
practices, initiatives, education,
research, and design approaches.
Key themes are:
•Leadership for Advancing
the Practice of Patient- and
Family-Centered Care
•Developing and Sustaining
Effective Partnerships with
Patient and Family
Advisors/Leaders
•Collaboration with Patients
and Families in Primary Care
•Changing the Concept
of Families as Visitors in
Hospitals and Other Health
Care Facilities
•Education of the Public to
Promote Active Engagement
in Health Care
•Mind-Body Programs and
Practices Within a Patientand Family-Centered
Framework
A diverse group of expert
presenters will represent
hospitals, health systems,
community-based programs,
patient- and family-led
organizations, physician
practices, schools of medicine,
nursing, allied health, and other
health professions. Educational
sessions will address a variety
of settings including adult
and pediatric inpatient care
and ambulatory/primary
care, maternity care, newborn
intensive care, mental health,
chronic illness care, professional
education, and environment
and design, as well as optimal
healing environments.
Be a part of this
important meeting!
Who Should Attend
• Patient and Family Advisors and Leaders
• Health System Trustees, Administrative
Leaders, and Managers
• Health Care Practitioners and Clinicians
• Integrative Health Care Practitioners
• Stress Management and Mind-Body
Specialists
• Social Workers, Child Life Specialists,
Chaplains, and other Supporting Staff
• Respiratory, Occupational, and Physical
Therapists and Developmental Specialists
• Quality Management and Patient
Safety Personnel
• Care Coordinators/Discharge Planners
• Health Care Educators and
Information Specialists
conference overview
Patient- and family-centered care
offers a framework to respond to
the increasing complexities of health
care. Sessions will offer practical
strategies for redesigning systems of
care, changing culture, and partnering
with patients and families to improve
outcomes. Throughout the conference,
participants will observe the value of
partnering with patients and families
to address challenges, such as the
expanding use of technology, the
need for new facilities, the risk of
medical error, improving transitions
in care, redesigning the primary care
system, the increasing numbers of
people living with chronic conditions,
and the pressure to control costs.
Partnerships with patients and families
are integral to the practice of patientand family-centered care. These
powerful partnerships are essential to
redesigning health care and improving
quality and safety and the experience
of care.
• Faculty, Researchers, and Students in
Schools of Medicine, Nursing, Social
Work, Allied Health, and other
related fields
• Organizational Development Professionals
• Architects, Interior Designers, and Facility
Planning Staff
• Health Care Planners, Policy Makers, and
Government Agency Leaders
• VA/Military Administrative Leaders,
Clinicians, Staff, and their Patient and
Family Advisors
• Funders of Health Care Programs
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Conference Learning
Objectives
• Gain understanding of patient- and familycentered care and how it can be applied to all
settings across the continuum of care.
• Identify strategies to support and encourage
patient and family engagement and
partnerships among patients, families, and
health care professionals.
c o n f e r e n c e
ov e r v i e w
• Discuss patient- and family-centered
strategies for improving quality, safety, and the
experience of care.
• Explore examples of excellence and innovation
in patient- and family-centered policy, program,
practice, professional education, research
and facility design in hospitals, community
practices, and agencies across North America
and throughout the world.
• Delineate patient- and family-centered best
practices and related benefits for leadership,
the redesign of primary care and hospital
care policies and processes, and mind-body
programs and practices.
Continuing Education
Nurses: Approval is pending for this activity by the
Maryland Nurses Association which is accredited as
an approver of continuing education in nursing by
American Nurses Credentialing Center’s Commission
on Accreditation.
Physicians: Application for CME credits has
been filed with the American Academy of Family
Physicians. Determination of credit hours is pending.
Social Workers: This program is pending
approval from the National Association of
Social Workers.
Spread the Word!
Learn How to Tweet!
Do you tweet? Want to tweet? Need a Twitter account?
The Institute wants to help you spread the word about what’s
happening at The 5th International Conference on Patientand Family-Centered Care. As a complimentary service to
participants—and to help spread the word—we will teach you
how to set up a Twitter account, how to tweet, learn how to
follow others, and how to get followers.
Look for our Twitter table in the Exhibit Hall and start tweeting!
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Special Programming
The Institute for Patient- and Family-Centered Care is proud to partner
with these two leading non-profit organizations dedicated to improve
health care:
Samueli Institute’s Vision is “a world
in which healing processes are the
formative concept for achieving and
maintaining wellness and ameliorating
chronic disease.” During the conference,
Samueli will convene three dedicated
sessions that focus on mind-body
programming: 1) Developing and
Implementing Mind-Body Programs
and Practices Within a Patient- and
Family-Centered Framework;
2) Evaluating Mind-Body Programs and
Practices Within a Patient- and FamilyCentered Framework; and
3) Showcasing Mind-Body Programs
and Practices Within a Patient- and
Family-Centered Framework: The
Lived Experience.
These sessions are identified in the
program brochure by:
Based upon a review of existing efforts
to measure and improve patientcentered care, Picker determined that
an organizing principle focused on
the concept of Always Events® can
be implemented to drive the health
care system to become more patientcentered. In contrast to the well known
“Never Events” that refer to incidents
that should never happen in the delivery
of care, patient-focused Always Events®
are aspects of the patient and family
experience that should always occur
when patients interact with health care
professionals and the delivery system.
The Picker Patient Experience Series is
identified in the brochure by:
“Truly an outstanding
conference…a career
investment!”
— Philadelphia
Conference Participant
Marie R. Abraham, MA
Senior Policy and Program Specialist
Institute for Patient- and FamilyCentered Care
Old Lyme, CT
Christine Bechtel, MA
Vice President
National Partnership for Women & Families
Washington, DC
Elizabeth Crocker, BA, MEd
President
Woozles Ltd. and Author
Vice President, Board of Directors
Halifax, NS, Canada
Nancy DiVenere
Founder/Past President
Parent to Parent USA
Essex Junction, VT
Kimberly Firth, PhD
Senior Research Associate
Optimal Healing Environments Program
Samueli Institute
Alexandria, VA
Beverley H. Johnson
President and Chief Executive Officer
Bethesda, MD
Wayne Jonas, MD
President and Chief Executive Officer
Samueli Institute
Alexandria, VA
Joanna Kaufman, RN, MS
Information Specialist
Bethesda, MD
Julie Ginn Moretz, BS
Family Leader and Director of
Special Projects
Augusta, GA
Debra Ness, MS
President
National Partnership for Women & Families
Washington, DC
William E. Schwab, MD
Professor and Vice Chair, Department of
Family Medicine
University of Wisconsin School of Medicine
and Public Health
Madison, WI
Terri Shelton, PhD
Director, Center for Youth, Family, and
Community Partnerships
University of North Carolina at Greensboro
Greensboro, NC
Katherine Smith, MPH
Program Manager
Optimal Healing Environments Program
Samueli Institute
Alexandria, VA
cp
o innfwe h
r ee en lc es poov ne sr ov r
i es w
The Samueli Institute is an independent
research organization uniquely
positioned to illuminate the value of
wellness and healing practices and
to facilitate a change in behaviors to
actualize those practices and outcomes.
The Institute focuses on determining
the safety, effectiveness, and utility of
wellness approaches, integrative health
care, and healing oriented practices and
environments. The Institute generates
knowledge and information about
wellness and healing and provides that
information to the public.
The Picker
Institute is an
independent
nonprofit
organization
dedicated to advancing the principles of
patient-centered care. In cooperation
with educational institutions and other
committed entities and individuals, the
Picker Institute sponsors awards,
research, and education to promote
patient-centered care. The Picker
Institute fosters improvement in health
care from the patient’s perspective—
through the patient’s eyes. The Picker
Patient Experience Series highlights
seven presentations and several posters
that depict best practices in patientcentered care, emphasizing patient/
family partnerships in health care.
Several featured presentations are Picker
Institute’s 2011/2012 Always Events®
Challenge Grant Recipients that
address two key thematic areas of focus
for Always Events®—communication
and care transitions.
conference Program
Advisory Committee
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A b s t r ac t
R e v i e w
C o m m i t t e e
C o n f e r e n c e A b s t r ac t R e v i e w C o m m i t t e e
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Marie R. Abraham, MA
Senior Policy and
Program Specialist
Old Lyme, CT
Elizabeth Ahmann, ScD, RN, ACC
Consultant, Child and Family Health
Section Co-Editor, Family Matters
Pediatric Nursing AD/HD and Life Coaching
Cheverly, MD
Carolyn Allshouse
Executive Director
Family Voices of Minnesota
Stillwater, MN
Janet Bell-Taylor, MBA
Director, Patient Family Services and Michael
Fux Family Center
Miami Children’s Hospital
Miami, FL
Brenda B. Boberg
Executive Director
Family Support Network of Eastern
North Carolina
Vidant Health
Greenville, NC
Joanna F. Celenza, MA, MBA
March of Dimes/CHaD ICN Family
Support Specialist
Intensive Care Nursery
Children’s Hospital at Dartmouth
Lebanon, NH
Tiffany Christensen, BFA
Chief Executive Officer
Sick Girl Speaks, Inc.
Co-Chair, Duke Patient Advocacy Council
Durham, NC
Michelle Collis, MA
Vice President, Patient- and FamilyCentered Care
Methodist Le Bonheur Healthcare
Memphis, TN
Cherie A. Craft, MEd
Executive Director, Smart from the Start
City of Boston, Mayor’s Office
Boston, MA
Catherine Crock, MD, BS
Physician
Australian Institute for Patient and Family
Centred Care
Melbourne, Victoria, Australia
Elizabeth Crocker, BA, MEd
President, Woozles Ltd., and Author
Vice President, Board of Directors
Institute for Patient- and Family-Centered Care
Halifax, NS, Canada
Rhonda Crocker Ellacott, HBScN, MA
(CNS), EdD
Vice President, ER, Critical Care, Trauma &
Surgery and Chief Nursing Executive
Thunder Bay Regional Health Sciences Centre
Thunder Bay, Ontario, Canada
Pam Dardess, MPH
Senior Researcher
American Institutes for Research
Chapel Hill, NC
Barb Degnen, RN, BSN
Patient Representative
Institute for Clinical Systems
Improvement, Inc.
Edina, MN
Nancy DiVenere
Founder/Past President
Parent to Parent USA
Essex Junction, VT
Deborah Dokken, MPA
Family Healthcare Advocate/Consultant
Chevy Chase, MD
Anika Doucette, MS, MT (ASCP)
Customer Service Program Manager and
Patient Centered Care Coordinator
Department of Veteran Affairs
Atlanta VA Medical Center
Atlanta, GA
Michelle Z. Esquivel, MPH
Director, Division of Children with Special Needs
Director, National Center for Medical
Home Implementation
American Academy of Pediatrics
Elk Grove, IL
Ted Eytan, MD, MS, MPH
Medical Director for Delivery Systems
Operations Improvement
The Permanente Federation, LLC
Kaiser Permanente
Washington, DC
Gareth Fenley, MSW, CPS
Certified Peer Specialist
Department of Psychiatry and Health Behavior
Georgia Health Sciences University
Augusta, GA
Kimberly Firth, PhD
Optimal Healing Environment
Samueli Institute
Alexandria, VA
Marlene Fondrick, BSN, MSN, RN
Program Associate
Richville, MN
Brenda Foster, RN BScN
Patient Relations Coordinator
Chatham-Kent Health Alliance
Chatham, Ontario, Canada
Joanne Ganton, BComm
Manager, Patient & Family Centred Care
Alberta Health Services — South
Health Campus
Calgary, Alberta, Canada
Milton Gardner, BArch, AIA, FRAIC, EDAC
Principal
Kasian Architecture Interior Design and
Planning, LTD
West Vancouver, British Columbia, Canada
Michael G. Goldstein, MD
Associate Chief Consultant for
Preventive Medicine
Veterans Health Administration
Durham, CT
Kelly Gourdin, BS
Program Manager, Optimal
Healing Environments
Samueli Institute
Alexandria, VA
Susan Grant, MS, RN, FAAN, NEA-BC
Chief Nurse Executive
Emory Healthcare
Atlanta, GA
Terry Griffin, MS, APN
Neonatal Nurse Practitioner
St. Alexius Medical Center
Hoffman Estates, IL
W. Kent Guion, MD, MA
Vice President for Diversity and Inclusion
Augusta, GA
Alexandra Harrison, PhD
Adjunct Associate Professor Faculty
of Medicine
University of Calgary
Calgary, Alberta, Canada
Leslie Hazle, MS, RN, CPN
Director of Patient Resources
Cystic Fibrosis Foundation
Bethesda, MD
Sandy Hobbs, BSN, MSN, RN
Director, Network Partnerships and Outreach
Medical Center
Augusta, GA
Amy Jones, BS, RRT
Administrator, Office of Patient and
Family Experience
Vidant Health
Greenville, NC
Wendy Jones, MEd, MSW
Director, Children and Youth with Special
Health Care Needs Project
National Center for Cultural Competence
Georgetown University Center for Child &
Human Development
Washington, DC
Joanna Kaufman, BS, MS, NCAST
Information Specialist
Bethesda, MD
Linda Larin, MBA, FACHE, FACCA
Chief Administrative Officer
University of Michigan Cardiovascular Center
Ann Arbor, MI
George A. Little, MD
Professor of Pediatrics
Dartmouth Medical School
Dartmouth-Hitchcock Medical Center
Lebanon, NH
Roslyn Marshall, RN, BSN, MHSA
Nurse Manager, Neuroscience Center
Augusta, GA
Albert (Nick) Masi, PhD
Director, Patient- and Family-Centered Care
Joe DiMaggio Children’s Hospital
Hollywood, FL
Brenda Miller, BFA
Parent Coordinator
University of Michigan Health System
Ann Arbor, MI
Mary Minniti, CPHQ
Program and Resource Specialist
Eugene, OR
Julie Ginn Moretz, BS
Family Leader and Director of Special Projects
Augusta, GA
Keith Murphy
Assistant Director, Patient & Family Experience
Women and Infants Hospital of Rhode Island
Providence, RI
Margaret Murphy
External Lead, Patients for Patient Safety
World Alliance for Patient Safety
Cork, Ireland
Nancy Newman, MSW, LCSW
Director, Patient Support and Advocacy
Moffitt Cancer Center
Tampa, FL
Scott Newport
Patient/Family Leader
Mott Children’s Hospital/University of MI
Ann Arbor, MI
Bonnie Nicholas, RN, CNCC(C), CPTC
Patient and Family Centred Care Lead
Thunder Bay Regional Health Sciences Centre
Terri Nuss, MS, MBA
Vice President, Patient Centeredness
Baylor Health Care System
Dallas, TX
Lynne Wilson Orr, BID, MArch, OAA, RAIC
Principal
Parkin Architects Limited
Toronto, Ontario, Canada
Marilyn Oelfke, RN, BS
Former Senior Director of Long-Term
Care Services
Perham Memorial Hospital and Home
Perham, MN
Kelly Parent, BS
Family Leader and Manager, Patient- and
Family-Centered Care Program
C.S. Mott Children’s Hospital and Voightlander
Women’s Hospital
University of Michigan Hospital and Health
Centers
Ann Arbor, MI
Sherry Perkins, PhD, RN
Chief Nursing Officer/Senior Vice President
for Patient Care
Anne Arundel Health System
Annapolis, MD
Tracy Price-Johnson
Children’s Advisory Council
Children’s Hospital of Colorado
Aurora, CO
Victoria Ransom, RN, MSN
COL (Retired)
Walter Reed National Military Medical Center
Columbia, MD
Debra Rosen, RN, MPH
Program Director, Public Health,
Health Education, Chronic Disease
and Health Education
Northeast Valley Health Corporation
San Fernando, CA
Anna Roth, MS, MPH
Chief Executive Officer
Contra Costa Regional Medical Center and
Health Centers
Martinez, CA
Judy Roudebush, RN, NE-BC
Director, Women and Children’s Services
Providence Regional Medical Center Everett
Everett, WA
Hollis Guill Ryan
Program Coordinator
Patient and Family Centered Care Services
University of Washington Medical Center
Seattle, WA
Judith Schaefer, MPH
MacColl Center for Health Care Innovation
Seattle, WA
Juliette Schlucter, BS
Family Leader and Patient- and FamilyCentered Care Consultant
Ocean City, NJ
Terri L. Shelton, PhD
Director, Center for Youth, Family, and
Community Partnerships
University of North Carolina at Greensboro
Greensboro, NC
Katherine Smith, MPH
Program Manager, Optimal
Healing Environments
Samueli Institute
Alexandria, VA
Terrell Smith, MSN, RN
Director, Patient and Family Centered Care
Vanderbilt University Hospital
Nashville, TN
Donna Thompson, LLD (Hon)
Patient and Family Advocate
Halifax, Nova Scotia, Canada
Mike Vossmeyer, MD
Assistant Professor, Clinical Pediatrics
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Peggy J. Wagner, PhD
Professor, Family Medicine
University of South Carolina
Greenville, SC
Lynel Westby, BA, RN
Director, Patient and Family Support Services
Seattle Children’s Hospital
Seattle, WA
Kathi Zarubi, RN, BSN, MBA, NEA-BC
Associate Vice President
Scottsdale Healthcare
Scottsdale, AZ
Pre-Conference Hospital Tours
Sunday, June 3, 1:30 – 5:30 pm
Fort Belvoir Community Hospital Tour
Cost: $15 (Transportation)
The new Fort Belvoir Community Hospital is part of
an integrated health care network providing world-class
medical service to the nation’s wounded, active duty
service members, retirees, and family members. See
firsthand how patients and families are supported in this
healing environment and how families are welcomed
24/7. In addition to touring patient- and family-centered
inpatient areas, participants will get a close up view of
other unique features including the smart board which
reads the namebadge of those entering the patient room
as well as the spectacular healing garden. The hospital is a
LEED Silver building.
Sunday, June 3, 3:00 – 5:30 pm
H o s p i ta l
Children’s National Medical Center
Participants will enjoy refreshments in the Research
Atrium, and learn about Children’s National’s patientand family-centered care journey, hearing from its
leadership, staff, and members of the Patient Family
Advisory Council. Other tour areas include:
•The Main Atrium—known as the living room of the
hospital—serves as one of the main hubs for families.
•The Emergency Department’s trauma bays designed to
accommodate family presence. Learn more about the
region’s only Level 1 Pediatric Trauma Center.
•The state of the
art patient- and
family-centered
Decontamination
Unit for decontaminating parents and
patients together
before treatment in
cases of biologic or chemical contamination.
•The Joseph E. Roberts Center for Surgical Care—
expanded in 2009 with input from patients and
families—includes a flow re-design, an educational
kiosk, a quiet room for meditation, and an electronic
board that tracks the progress of patients from the
beginning of surgery through recovery.
T o u r s
Tour The
Children’s
National Medical
Center, an
award-winning hospital recognized for its dedication to
an exceptional standard of comprehensive care for patients
and families. Tour highlights include patient care areas,
such as the Medical Care and Respiratory Care Unit,
Hematology and Oncology Unit, Heart and Kidney Unit,
CICU and Heart Institute Clinic, and areas that support
patients and families in the Neuroscience Unit, Surgical
Care Unit, and NICU.
P r e - C o n f e r e n c e
Fort Belvoir Community
Hospital, the newest military
hospital in the nation, serves as
a model for military hospitals
around the world. Patient and family advisors participated
in the planning for this new facility that opened in 2011.
The guiding principles to achieve the hospital’s mission,
pursue its vision, and maintain the highest level of quality
and service are the Culture of Excellence, Patient- and
Family-Centered Care, and Evidence Based Design.
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Program At-A-Glance
Monday, June 4, 2012
7:00 am – 8:00 am
Registration, Continental Breakfast, Exhibits, Poster Displays
8:00 am – 10:00 am
Plenary Session
10:00 am – 10:30 am
Break — Exhibits/Poster Presentations (Staffed)
10:45 am – 12:45 pm
Concurrent Sessions
A1 – A10
c o n f e r e n c e
Ag e n da
Lunch — Exhibits/Poster Presentations (Staffed)
12:45 pm – 2:00 pm
Special Luncheon with Jim Conway — Learning and Improving Health
Care Systems: The Patient, the Family, the Public (Reservations required)
2:15 pm – 3:30 pm
Major Breakout Sessions
3:30 pm – 3:45 pm
Break
3:45 pm – 5:00 pm
Concurrent Sessions
5:00 pm – 6:30 pm
Welcome Reception (Exhibits/Poster Displays)
Networking Dinner at Medaterra Bistro and Bar (Reservations required)
6:30 pm
B1 – B5
C1 – C10
Tuesday, June 5, 2012
7:00 am – 8:00 am
Registration, Continental Breakfast (Networking Breakfast for Patient
and Family Leaders), Exhibits, Poster Displays, Table Talks
8:00 am – 9:15 am
Opening Plenary — Picker Lecture
9:15 am – 9:45 am
Break — Exhibits/Poster Displays
10:00 am – 11:15 am
Concurrent Sessions
11:15 am – 11:30 am
Break
11:30 am – 12:45 pm
Concurrent Sessions
D1 – D10
E1 – E10
Lunch — Exhibits/Poster Displays/Table Talks
12:45 pm – 2:00 pm
Lunch Grab and Gab
Special Luncheon: Patient- and Family-Centered Canadian Models
of Excellence — Meaningful Engagement: Let’s Spread the Learning
(Reservations required)
2:15 pm – 3:45 pm
Concurrent Sessions
3:45 pm – 4:00 pm
Break
4:00 pm – 5:15 pm
Concurrent Sessions
Networking Dinner at Medaterra Bistro and Bar (Reservations required)
6:30 pm
F1 – F10
G1 – G10
Wednesday, June 6, 2012
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7:00 am – 8:00 am
Registration, Continental Breakfast (Informal Networking Breakfasts)
8:00 am – 9:15 am
Concurrent Sessions
9:15 am – 9:30 am
Break
9:30 am – 11:00 am
Concurrent Sessions
11:00 am – 11:15 am
Break
11:15 am – 12:30 pm
Concurrent Sessions
12:30 pm – 2:00 pm
Lunch Break (On your own)
2:00 pm – 3:15 pm
Concurrent Sessions
3:15 pm – 3:30 pm
Break
3:30 pm – 4:45 pm
Closing Plenary
H1 – H11
I1 – I11
J1 – J11
K1 – K10
Exhibit Hall Activities and Special Events
activities at-a-glance
Sunday, June 3
1:30 pm – 5:00 pm Tour of Fort Belvoir Community
Hospital
3:00 pm – 5:30 pm Tour of The Children’s National
Medical Center
Monday, June 4
10:00 am - 10:30 am Exhibit Hall Open— Book
Signing/Steven Johnson
12:45 pm - 2:00 pm Special Luncheon with Jim
Conway — Learning and
Improving Health Care
Systems: The Patient, the
Family, the Public (Reservation
required — $55)
4:45 pm – 6:30 pm Welcome Reception
6:30 pm Informal Networking Dinner—
Tuesday, June 5
7:00 am – 8:00 am Networking Continental
Breakfast for Patient and
Family Leaders/Table Talks
12:45 pm – 2:00 pm Special Luncheon: Patient- and
Family-Centered Canadian
Models of Excellence —
Meaningful Engagement: Let’s
Spread the Learning
Host: Canadian Health
Services Research Foundation
(Reservation required — $55)
Lunch Grab and Gab (Topics to
be announced at conference),
and Table Talks
6:30 pm Informal Networking Dinner—
Medaterra Bistro and Bar
Wednesday, June 6
7:00 am – 8:00 am Networking Continental
Breakfasts (Topics to be
announced at conference)
Poster presentations will showcase innovative programs
and patient- and family-centered initiatives from hospitals,
health care systems, and organizations. Posters can be
viewed in the Exhibit Hall on Monday and Tuesday. An
interactive poster session with the authors will be featured
on Monday during the morning break and lunch break.
Exhibits
Selected vendors will feature tried-and-true products,
services, and resources in the Exhibit Hall as another way
to learn about innovations in health care. Participants
are encouraged to take advantage of this opportunity to
network with our exhibitors in an informal atmosphere.
Massage Therapy
Expand your mind at the conference and then, relax with a
soothing complimentary chair massage. Chair massages will
be offered during lunch breaks on Monday and Tuesday in
the Exhibit Hall.
Participant Meals
For your planning purposes, a continental breakfast is
included as part of your registration Monday-Wednesday.
Lunch tickets are also provided for all participants on Monday
and Tuesday and can be redeemed in the Exhibit Hall.
Guest Badge
Guest badges may be purchased for these special activities:
(Guest badge does not include participation in or auditing
of any educational sessions.)
•Welcome Reception and Continental Breakfasts
(Monday – Wednesday) Cost: $100
•Informal Networking Dinner — Medaterra Bistro and Bar
(Monday or Tuesday) Cost: $35
ac t i v i t i e s
Poster Presentations
Several of the following Special Activities require
advance registration. Please be sure to secure
your place by indicating your interest on the
Conference Registration form.
SUNDAY, JUNE 3 – PRE-CONFERENCE
HOSPITAL TOURS
Tour of Fort Belvoir Community Hospital
1:30 – 5:00 pm
The newest military hospital in the nation is opening its
doors to showcase its unique patient- and family-centered
features. See how patients and families participated in the
planning for this world-class medical center that provides
service to the nation’s wounded, active duty service
members, retirees, and family members.
9
Tour of The Children’s National Medical Center
3:00 – 5:30 pm
See what patient- and family-centered care looks like at an
award-winning children’s hospital dedicated to an exceptional
standard of comprehensive care for patients and families. Tour
patient care units and areas that support patients and families.
Special Luncheon
Patient- and Family-Centered Canadian Models
of Excellence — Meaningful Engagement: Let’s
Spread the Learning
12:45 – 2:00 pm
MONDAY, JUNE 4
Cost: $55 (reservation required—limited space)
Book Signing — Steven Johnson
10:00 – 10:30 am
Host: Canadian Health Services Research Foundation
Steven Johnson, an award-winning author
on innovation and the intersection of science,
technology, and personal experience, will
autograph copies of his best selling book,
Where Good Ideas Come From: The Natural
History of Innovation, in the exhibit hall.
Special Luncheon with Jim Conway — Learning
and Improving Health Care Systems: The Patient,
the Family, the Public
12:45 – 2:00 pm
ac t i v i t i e s
Cost: $55 (reservation required—limited space)
Jim Conway is a well-known and much
respected pioneer in the patient- and familycentered care community around the world.
As the Institute for Patient- and FamilyCentered Care’s first Leadership Award
recipient, you will be inspired and motivated
as he shares timely and provocative information —
Learning and Improving Health Care Systems: The Patient,
the Family, the Public.
Welcome Reception, 4:45 – 6:30 pm
Join colleagues for this social gathering in the Exhibit Hall.
Cash bar; light hors d’oeuvres. Guest badges are available.
Informal Networking Dinner, Medaterra Bistro and
Bar, 6:30 pm
Cost: $35 (includes meal, tax, and gratuities; reservation
required—limited space)
Experience the unique and succulent flavors that mark
the food of Medaterra. A quaint neighborhood bistro that
specializes in unique twists on familiar Mediterranean fare is
the perfect place to network with conference colleagues. The
menu will feature an appetizer platter, choice of one of four
entrees, and choice of dessert. Guest badges are available.
This same opportunity is available on Tuesday evening.
TUESDAY, JUNE 5
Networking Continental Breakfast for Patient and
Family Leaders, 7:00 – 8:00 am
Enjoy breakfast with patient and family leaders in an
informal setting. Continental breakfast is included as part
of registration.
10
Other networking breakfasts can be arranged based on
interest and will be announced during the conference.
This luncheon highlights the
good work of patients,
families, and citizens,
partnering with health care leaders and planners, in health
care quality improvement. The Patient Engagement Projects
(PEP) initiative of the luncheon sponsor, the Canadian
Health Services Research Foundation (CHSRF), supports
teams from health care organizations across Canada to
improve the quality of care and the effectiveness and
efficiency of health services by engaging patients and their
families in design, delivery, and evaluation. CHSRF is an
independent organization dedicated to accelerating health
care improvement and transformation for Canadians.
CHSRF collaborates with governments, policymakers, and
health system leaders to convert evidence and innovative
practices into actionable policies, programs, tools, and
leadership development.
Lunch Grab and Gab, 12:45 – 2:00 pm
Grab your lunch and head to the designated area to
connect with others who share your curiosity or interest in
a specific topical area. Over lunch, “gab” with colleagues to
discuss a variety of topics. Topics will be announced at the
conference. Lunch is included in registration.
Informal Networking Dinner, Medaterra Bistro and
Bar, 6:30 pm
Cost: $35 (includes meal, tax, and gratuities; reservation
required—limited space)
In case you didn’t make it for Monday’s networking dinner,
this same opportunity is offered on Tuesday evening.
Make plans to enjoy a casual evening with colleagues for
conversation and dinner. The menu will feature an appetizer
platter, choice of one of four entrees, and choice of dessert.
Guest badges are available.
WEDNESDAY, JUNE 6
Networking Continental Breakfast —
Round Table Discussion, 7:00 – 8:00 am
Join colleagues for this informal networking breakfast for a
round table discussion. Learn from each other on a variety
of current health care topics. Topics will be announced in
Conference Syllabus.
WELCOME TO WASHINGTON, DC
Here, the nation celebrates, honors, and
demonstrates its commitment to democracy.
As you arrive in Washington, DC, you are greeted by the unforgettable
skyline that is marked by some of the world’s most celebrated monuments
and memorials. The picturesque structures and statues against the green
expanses of the National Mall is an unforgettable vista and a reminder of
its historical roots. As a world capital, Washington, DC presents unique
opportunities to learn about and engage in world cultures. Rich in history
and never letting go of its dynamic past, DC is also a cosmopolitan city with
a full slate of enriching, exciting, and rewarding things to do. Take time to explore the nation’s capital and create memories
that will last far beyond the conference.
HOTEL INFORMATION
All conference events will be held at:
Dining is offered onsite at Robert’s, a casually elegant full
service restaurant. Other casual dining options include
Morsels, a gourmet coffee bar, and the Marquee Bar and
Lounge. Within walking distance of the hotel, guests can
choose from a variety of restaurants.
The hotel offers a range of guest services including a full
service business center, gift shop
and jewelry store, guest room
dining available 24 hours, high
speed wireless internet access, and
spa services.
Conference participants are
strongly encouraged to join the
Omni’s Loyalty Program-Select
Guest to enjoy complimentary
perks, including in-room Wi-Fi,
bottled water, daily newspaper of
your choice, laundry pressings,
shoe shine, morning beverage
delivery, and much more. To enroll
prior to arriving onsite, go to:
http://www.omniselectguest.com.
The Omni Shoreham Hotel is holding a limited number
of rooms for conference participants at the group rate
until May 3 unless rooms sell out before then. Rooms after
this date are on a space and rate availability. To make a
reservation, call 800-THE-OMNI (843-6664) or 202234-0700 and be sure to indicate that you are with The 5th
International Conference on Patient- and Family-Centered
Care in order to receive the special rate. Hotel reservations
can also be made online directly with The Omni Shoreham
Hotel via the Institute’s website at www.ipfcc.org/
conference-hotel.html. The room rate is $229 single/double
per night (U.S. funds), plus 14.5% tax.
Hotel reservations must be guaranteed by a major credit
card. The hotel requires cancellations by 4:00 pm (ET)
24 hours prior to arrival to avoid billing or forfeiting the
room deposit. ‘No shows’ will be charged for one night and
tax to credit card. Rooms typically sell out early so make
reservations as soon as possible. The special group rate will
be in effect three days before and
after the conference for those
arriving early or extending their
stay to enjoy the DC area. In
order to receive this special rate for
these extended days, please make
reservation by phone.
i n f o r m at i o n
Since 1930, the Omni Shoreham Hotel in Washington, DC
has played host to presidents, world leaders, and inaugural
balls, making it a true historic Washington landmark. This
grand luxury hotel offers a resort atmosphere and a personal
taste of politics, culture, art, and music at its best. The fourdiamond Omni Shoreham Hotel is nestled on 11 acres in
picturesque Rock Creek Park in northwest Washington, DC
and is only steps away from the National Zoo.
RESERVATIONS
H o t e l
The Omni Shoreham Hotel
2500 Calvert Street, NW
Washington, DC
202-234-0700
1-800-THE-OMNI
Check-in time is at 3:00 pm and check-out time is noon.
Guest service staff can arrange to check baggage on day
of departure.
For your travel planning purposes,
the conference begins at 8:00 am
on Monday, June 4 and extends
through 4:30 pm on Wednesday,
June 6. Arrive early on Sunday
and pick up your conference
materials from 4:00–7:00 pm
to avoid early Monday morning
registration.
11
TRANSPORTATION/PARKING
c o n f e r e n c e
i n f o r m at i o n
The hotel charges for valet parking. The special
conference guest rate for overnight parking is $28, plus
tax, per night. A day rate of $20, plus tax, will be offered
to conference participants. Please note that there is no selfparking at the hotel and parking is limited. Area residents
are encouraged to use the Metro subway system.
12
The DC area is served by three airports: Reagan National
(DCA), Dulles International (IAD), and Baltimore
Washington International (BWI). From Reagan
National Airport, the taxi fare to the Omni Shoreham is
approximately $25; the Super Shuttle fare is $17. From
Dulles, the taxi fare is $60. The Super Shuttle ($32) is
available at Ground Transportation. From BWI Airport,
the taxi fare is $90, and the Super Shuttle ($42) is available
at Ground Transportation. To make a reservation for
the Super Shuttle, go to www.supershuttle.com, e-mail
[email protected], or call (800) 258-3826.
Also from BWI, an alternative bus service (B30) to the
Greenbelt Metro station is available starting at 7:00 am
on weekdays. At the Greenbelt Metro, take the subway to
Metro Center and transfer to the Red Line train marked
Shady Grove or Grosvenor, exiting at the Woodley Park/
Zoo station.
Washington’s excellent Metro subway system (Red
Line) stops within a block of the Omni Shoreham at
the Woodley Park/Zoo station. As you exit the subway
station, turn to the right. Then walk one block to the
left. The Omni Shoreham Hotel is diagonally across that
intersection on the right.
DRESS
We encourage relaxed and comfortable business dress
throughout the conference. Bring a sweater or jacket to
sessions as the temperature in meeting rooms often varies.
The weather in DC is typically very nice as spring begins to
settle into summer. Average temperature is about 75 degrees.
RESTAURANTS
Plenty of restaurants are within walking distance from the
hotel. For a complete listing, please see the hotel concierge.
SPECIAL NEEDS
If you have mobility challenges or other special needs, the
Institute would like to know so we can be sure your needs
are met. If the Institute can assist in making your stay more
comfortable by accommodating for special needs, please let
us know.
k e y note a nd hig hlig ht ed spe a k ers
Don Berwick, MD
Tiffany Christensen
Don Berwick is the
United States’ leading
advocate for highquality health care. He has just
stepped down as the Administrator of
the Centers for Medicare and
Medicaid Services. For 22 years prior,
he was the founding CEO of the
Institute for Healthcare Improvement, a nonprofit
dedicated to improving health care around the world. A
pediatrician by background, he has also served on the
faculty of the Harvard Medical School.
Steven Johnson
Liz Crocker is a businesswoman,
writer, teacher, and environmentalist.
Liz is known as an innovator, child
advocate, and supporter of the arts.
Currently, Liz consults, works as a
Simulated Patient and Clinical
Teaching Associate with the Dalhousie
School of Medicine, and co-owns two
businesses. She has also served as Chair of the Canadian
Institute of Child Health, President of the Association for
the Care of Children’s Health, and Coordinator of the
Future Quest program at the Centre for Entrepreneurship
Education and Development. Liz is Vice-Chair of the
Institute for Patient- and Family-Centered Care.
S p e a k e r s
Steven is a contributing editor to Wired magazine and is
the 2009 Hearst New Media Professional-in-Residence
at The Journalism School, Columbia University. He won
the Newhouse School fourth annual Mirror Awards for
his TIME magazine cover article titled “How Twitter Will
Change the Way We Live.” He has also written for The
New York Times, The Wall Street Journal, The Nation,
and many other periodicals. He has appeared on many
high-profile television programs, including The Charlie
Rose Show, The Daily Show with Jon Stewart, and
The NewsHour with Jim Lehrer. He lectures widely on
technological, scientific, and cultural issues.
(Plenary: Monday, June 4, 8:00 am)
LIZ CROCKER
H i g h l i g h t e d
Steven is the best-selling author of
seven books on the intersection of
science, technology, and personal
experience. His writings have
influenced everything from the way
political campaigns use the Internet,
to cutting-edge ideas in urban
planning, to the battle against
21st-century terrorism. In 2010, he was chosen by
Prospect magazine as one of the Top Ten Brains of the
Digital Future. His latest book, Where Good Ideas Come
From: The Natural History of Innovation, was a finalist for
the 800-CEO-READ award for best business book of
2010. His books have been translated into more than a
dozen languages.
Dr. Berwick sees tremendous unrealized potential in
American medicine. Despite our outstanding knowledge
base, expert practitioners, and world-class equipment,
most Americans do not have access to safe, high-quality
care. Dr. Berwick presents a vision of how, through wellapplied Information Technology, new methods of health
care delivery, and effective legislation, America can forge
a system that satisfies our patients, our wallets, and our
moral imperative to care for those who need care. His
focus on improving quality has gained him a reputation
as a powerful motivator who can push institutions and
individuals to do their work better. For his important role
in designing Britain’s healthcare system, Dr. Berwick was
named a Fellow of the Royal College of Physicians in
London and Honorary Knight Commander of the Order of
the British Empire.
(Plenary — Picker Lecture: Tuesday, June 5, 8:00 am)
a n d
Tiffany was born with cystic fibrosis
and has received two life-saving
double lung transplants. She has a
BFA in theater from the UNC School
of the Arts, is a TeamSTEPPS Master
Trainer, a Respecting Choices
Advance CarePlanning Instructor, an
APPEAL certificate recipient, and the
creator of her own Train the Trainer workshop series
entitled “Finding Your Voice in the Healthcare Maze.” She
is a nationally recognized public speaker and the author
of three books exploring advocacy, end of life planning,
and partnership strategies in health care. Tiffany is the
Senior Co-Chair of Duke Healthcare’s Patient Advocacy
Council and a board member of the Beryl Institute for
improving the patient experience. Tiffany was the first
patient to become a Ben Sischy Visiting Scholar in
Humane Medicine from the University of Rochester.
Tiffany is a patient advocate at Duke Hospital working
primarily in the area of Oncology.
(Plenary: Monday, June 4, 8:00 am)
K e y n o t e
Keynote Profiles
Liz is the author of two children’s books and hundreds
of articles found in books, magazines, and newspapers.
She co-authored Privileged Presence, which is a
collection of stories about experiences in health care
with a focus on communication, collaboration, and
compassion. She is the editor of The Healing Circle:
Reclaiming Wholeness on the Cancer Journey, Integrating
Science, Wisdom and Compassion.
(Plenary: Wednesday, June 6, 3:30 pm)
13
k e y not e a nd hig hlig ht ed spe a k ers
K e y n o t e
a n d
S p e a k e r s
Debra Ness, MS
14
Debra is the president of the National
Partnership for Women & Families.
For over two decades, Debra has
been an ardent advocate for the
principles of fairness and social
justice. Drawing on an extensive
background in health and public
policy, she possesses a unique
understanding of the issues that face women and
families at home, in the workplace, and in the health care
arena. Before assuming her current role as President,
she served as Executive Vice President of the National
Partnership for 13 years. Debra has played a leading role
in positioning the organization as a powerful and
effective advocate for today’s women and families.
Debra serves on the boards of some of the nation’s most
influential organizations working to improve health care,
including the Consumer Advisory Council of the National
Committee for Quality Assurance (NCQA), the nation’s
leader in accrediting and developing quality measures
for managed care organizations and the National Quality
Forum (NQF), established by the President’s Advisory
Commission on Consumer Protection and Quality in
the Health Care Industry to develop and implement a
national strategy for health care quality measurement and
reporting. She serves on numerous other national boards.
(Plenary: Wednesday, June 6, 3:30 pm)
Highlighted Speaker Profiles
Jeffrey Horbar, MD
Dr. Jeffrey Horbar is a Professor of
Pediatrics at the University of Vermont
and the Chief Executive and Scientific
Officer of the Vermont Oxford
Network, an organization with over
900 hospitals around the world as
members dedicated to improving the
quality of medical care for newborn
infants and their families through a coordinated program
of education, quality improvement, and research.
(B2 Major Breakout: Monday, June 4, 2:15 pm)
Joanna Celenza, MA, MBA
Joanna brings her experience as the
mother of twins who were born
premature and spent the first five
weeks of their lives in the Intensive
Care Nursery at the Children’s
Hospital at Dartmouth (CHaD). This
powerful and empowering lifechanging experience led to her
passionate involvement as a volunteer for the ICN Parent
Council for the past nine years, and as chair for the past
six years. In addition to serving on several advisory
committees, she has also been a member of the Primary
Care Leadership Team at Dartmouth-Hitchcock. Joanna
is faculty for the Vermont Oxford Network’s NICQ7 quality
improvement collaborative in the area of patient- and
family-centered care. She is employed part-time at the
Intensive Care Nursery at Dartmouth as a March of
Dimes/CHaD ICN Family Support Specialist.
Richard J. Baron, MD, MACP
Dr. Richard Baron is the Group
Director, Seamless Care Models, at
the Innovations Center at Centers for
Medicare and Medicaid Services
(CMS). His portfolio includes
innovative Accountable Care
Organization models and models of
high value, comprehensive primary
care. Before joining CMS in April 2011, he practiced
general internal medicine at Greenhouse Internists, PC, a
seven-physician practice located in the Philadelphia
area. His practice was a pioneer in the comprehensive
adoption of electronic health records in the small practice
environment, achieving Level 3 Patient-Centered Medical
Home recognition from NCQA in August 2008.
Dr. Baron served as Chief Medical Officer of Health
Partners, a not-for-profit Medicaid HMO, from 1988
to 1996. He was the architect of the Best Clinical and
Administrative Practices program, funded by the Robert
Wood Johnson Foundation and the Center for Health
Care Strategies, working with medical leadership of
Medicaid health plans around the country in learning
collaboratives to improve the quality of care for their
members. This program reached plans serving more than
half of the Medicaid managed care population in the U.S.
k e y note a nd hig hlig ht ed spe a k ers
Susan Edgman-Levitan, PA, is
Executive Director of the John D.
Stoeckle Center for Primary Care
Innovation at Massachusetts General
Hospital (MGH). Prior to coming to
MGH, she was the founding
President of the Picker Institute. She
is a Lecturer in the Department of
Medicine, Massachusetts General Hospital, and an
Associate in Health Policy, Harvard Medical School. A
constant advocate of understanding the patient’s
perspective on health care, Susan has been the coprincipal investigator on the Harvard Consumer
Assessment of Healthcare Providers and Systems Study
(CAHPS) study from 1995 to the present.
Christine Bechtel, MA
“Rich content with a ton of expertise
and resources available to fit
any culture…”
— Philadelphia Conference Participant
Tracy Gaudet, MD, is the Director of
the VHA Office of Patient-Centered
Care and Cultural Transformation.
She was most recently the Executive
Director of Duke Integrative
Medicine, and Assistant Professor of
Obstetrics and Gynecology at Duke
University Health System. Under her
leadership, Duke Integrative Medicine has created a
state-of-the-art health care facility dedicated to the
transformation of medicine through the exploration of
new models of patient-centered health care. She has led
Duke Integrative Medicine to the forefront of the field,
co-founding The Consortium of Academic Health
Centers for Integrative Medicine. Dr. Gaudet actively
leads public discourse on the vision and strategies
needed to transform health care in the 21st century with
members of both the medical and lay communities as
well as leaders in health care reform and policy.
S p e a k e r s
Christine was previously Vice President of the eHealth
Initiative (eHI), where she led the organization’s
membership, public policy, and government relations
work. She has a background in health care quality
improvement from her work with the American Health
Quality Association and Louisiana Health Care
Review, now eQHealth Solutions, a Medicare Quality
Improvement Organization.
Tracy W. Gaudet, MD
Christine Bechtel is the Vice
President of the National Partnership
for Women & Families, a non-profit
consumer advocacy organization
based in Washington, DC. The
National Partnership has been the
driving force behind some of the
country’s most important policies
and initiatives, including the Family and Medical Leave
Act, the Pregnancy Discrimination Act, and the
Consumer Partnership for eHealth. As Vice President,
Christine oversees the day-to-day operations of the
organization, including its work on health care quality,
information technology, and patient engagement. She
also serves on the federal Health IT Policy Committee.
Susan serves on several boards and numerous national
advisory committees, including the Informed Medical
Decisions Foundation, the National Patient Safety
Foundation, the National Health Services Corps Advisory
Council, the Patient-Centered Primary Care Collaborative,
and is a member of the Lucian Leape Institute. She was
awarded the 2007 Leadership and Innovation award from
the Center for Information Therapy.
(C4 Breakout: Monday, June 4, 3:45 pm)
a n d
Susan Edgman-Levitan, PA
Farzad Mostashari, MD, ScM, serves
as National Coordinator for Health
Information Technology within the
Office of the National Coordinator
(ONC) for Health Information
Technology at the U.S. Department
of Health and Human Services. He
joined ONC in July 2009. Previously,
Dr. Mostashari served at the New York City Department
of Health and Mental Hygiene as Assistant Commissioner
for the Primary Care Information Project where he
facilitated the adoption of prevention-oriented health
information technology by over 1,500 providers in
underserved communities. He also led the Centers for
Disease Control and Prevention (CDC) funded NYC
Center of Excellence in Public Health Informatics and an
Agency for Healthcare Research and Quality funded
project focused on quality measurement at the point of
care. Prior to this, he established the Bureau of
Epidemiology Services at the NYC Department of Health.
K e y n o t e
Farzad Mostashari, MD, ScM
Recognized as a leader in the transformation of health
care, she speaks nationally through both public and
professional venues ranging from The Institute of Medicine
to The Oprah Show. Dr. Gaudet was named by Shape
magazine as one of eleven women who shape the world.
She was recently recognized as one of the “Top 25
Women in Healthcare 2011” by Modern Healthcare.
(E4 Breakout: Tuesday, June 5, 11:30 am)
15
C o n f e r e n c e S e ss i o n s
8:00 – 10:00 am
Plenary session
James B. Conway — Patient- and Family-Centered
Care Leadership Award Recipient
Jim Conway is an adjunct lecturer at the
Harvard School of Public Health in Boston,
and a principal of the Governance and
Leadership Group of Pascal Metrics in
Washington, DC. He has been the Senior
Vice President of the Institute for Healthcare
Improvement (IHI) and a Senior Fellow. During 1995-2005,
Jim was Executive Vice President and Chief Operating
Officer of Dana-Farber Cancer Institute (DFCI), Boston.
Prior to joining DFCI, he had a 27-year career at Children’s
Hospital, Boston. His areas of expertise and interests
include governance and executive leadership, patient safety,
change management, crisis management, and patient- and
family-centered care.
day at-a-glance
7:00 am – 8:00 am Registration, Continental
Breakfast, Exhibits, Poster
Displays
8:00 am – 10:00 am Plenary Session
10:00 am – 10:30 am Break — Exhibits/Poster
Presentations (staffed)
10:45 am – 12:45 pm Concurrent Sessions
(A1 – A10)
12:45 pm – 2:00 pm Lunch — Exhibits / Poster
Presentations (staffed)
Special Luncheon with
Jim Conway — Learning
and Improving Health Care
Systems: The Patient,
the Family, the Public
Where Do I Fit In? A Bed’s Eye View of Patient- and
m o n day
Tiffany Christensen, BFA, CEO; Sick Girl Speaks, Inc., Patient
Leader, TeamSTEPPS Master Trainer, Author, Co-Chair of the
Duke Patient Advocacy Council; Durham, NC
Having been born with cystic fibrosis and
having received two life-saving double lung
transplants, Tiffany will offer a “bed’s eye
view” of patient- and family-centered care.
She will distinguish between patient- and
family-centered care and good bedside
manner or just being kind to patients and families. Based on
her personal experience and her work in health care, Tiffany
will outline specific areas in which patient- and familycentered care opportunities exist and those that need
attention, and she will propose strategies to create an
environment that supports patient- and family-centered care.
Patterns of Innovation: Where Good Ideas Come From
Steven Johnson, Author of seven best-selling books on the
intersection of science, technology, and personal experience,
and recognized as one of the Top Ten Brains of the Digital
Future by Prospect magazine; Marin County, CA
Steven’s talk will draw from his best-selling
new book, Where Good Ideas Come From:
The Natural History of Innovation, which looks
at environments that have an enduring track
record of generating breakthrough ideas. He
will discuss the defining characteristics of
innovative spaces, and focus on the way new technology
platforms can be harnessed to increase creative thinking in
organizations large and small. He will use entertaining
stories to illustrate patterns of innovation at work.
16
2:15 pm – 3:30 pm Major Breakout Sessions
(B1 – B5)
3:30 pm – 3:45 pm Break
3:45 pm – 5:00 pm Concurrent Sessions
(C1 – C10)
5:00 pm – 6:30 pm Welcome Reception
(Exhibits/Poster Displays)
6:30 pm Networking Dinner at
10:00 - 10:30 am
Exhibit Hall: Staffed Posters,
Exhibits, and Refreshments
Author Book Signing: Steven Johnson
10:45 am – 12:45 pm
Concurrent Sessions (A1-A10)
A1
Patient- and Family-Centered Care as a Framework for
Process Excellence
Jane Fusilero, RN, MSN, MBA, Chief Nursing Officer, Vice
President for Patient Care Services; Nancy Newman, LCSW,
Director, Patient Support and Advocacy; Monica Vakiner, RN,
BSN, Patient Advisor; Moffitt Cancer Center, Tampa, FL
Three Patient Experience Projects, which were based on
the principles of patient- and family-centered care, will
be described. Involvement of patient advisors, use of the
Institute for Patient- and Family-Centered Care Institutional
Assessment tool, project processes, and measurable
outcomes related to the patient experience will be discussed.
Moving from a System-Centered to a Patient- and
Family-Centered System: An Organization’s Journey
Sharon Quinlan, RN, MSN, MBA, Clinic Director/Co-Director,
Department of Primary Care; Wade Roseth, Patient and Family
Partner; Amy Vanderscheuren, MA, Coordinator of Patient- and
Family-Centered Care; Essentia Health, Duluth, MN
As part of its strategic implementation of the patient- and
family-centered care philosophy, Essentia Health created
a program that successfully engages patient and family
partners. This presentation will describe Essentia’s journey,
including program ideation, implementation, lessons
learned, and evaluation tools.
Integrating a Family Engagement and Support Program
into Mental Health Peer Support Services: Leadership
Roles, Opportunities and Challenges
Annette Drost, Family Representative; Helen Harris, RSW,
MSW, MA, Manager, Social Work; Dawnna Keith, RRP, CVP,
CPRP, Manager, Rehabilitation; Schizophrenia and Community
Integration Services; Fiona Wilson, BA, CPRP, Coordinator,
Peer Support Services, Mental Health and Addiction Program;
St. Joseph’s Healthcare Hamilton, Hamilton, Ontario, Canada
The development and implementation of a Family
Engagement and Support Program into an existing
consumer driven and run Peer Support Service at an Acute
and Specialized Mental Health and Addiction Facility creates
unique leadership opportunities and challenges to be
explored.
A4
Engaging Patients and Families in Their Own Care and
in Improving Primary Care Practices: Lessons from
the California HealthCare Foundation’s “Team Up for
Health” Initiative
Malori Keller, BA, Client & Family Centered Care Specialist;
Saskatoon Health Region, Saskatoon, SK; Kathleen Peterson,
BSc, BEd, Director, Health System Planning; Saskatchewan
Ministry of Health, Regina, SK
Ross Adams, MS, CCC-SLP, Patient Advisor; Samer Assaf,
MD, Physician; Sharp Rees-Stealy, San Diego, CA; Kate
Meyers, MPP, Project Manager; California HealthCare
Foundation, Oakland, CA; Debra Rosen, RN, MPH, Program
Director, Public Health Programs, Chronic Disease and
Health Education; Northeast Valley Health Corporation,
San Fernando, CA
The province of Saskatchewan is simultaneously
approaching the adoption of patient- and family-centered
care from both a top-down and bottom-up approach. The
Patient First Review recommendations are the system
foundation and the Saskatoon Health Region is building
their client- and family-centred care program.
Cutting-edge provider organizations will
share their approaches to and experiences
with improving patient engagement,
strengthening communication skills and self-management
support, and involving diverse clinic staff, patients, and
families in assessing areas for improvement in primary care.
Patients and Families First: Innovation and
Collaboration for Quality Health Care
A5
A Provincial Journey to Patient- and Family-Centred
Care: Saskatchewan, Canada
Amber Alecxe, PhD, Research and Policy Analyst; Rosalee
Longmoore, RN, President; Saskatchewan Union of Nurses,
Regina, Saskatchewan, Canada
The Patients and Families First Initiative was developed
to address gaps in health care by engaging patients,
members of the public, patient advocacy groups, nurses,
and health care practitioners to develop and test sustainable
innovations for improving patient- and family-centred care.
A3
Improving Quality of Hospital-Based Psychiatric
Services at Contra Costa Regional Medical Center
Through Partnership with Patients and Families
m o n day
A2
Patient and family partners collaborated in redesign of
psychiatric services at Contra Costa Regional Medical
Center offering insight into problems and guiding goals and
priorities for improvement. Resultant improvements include
greater patient safety, decreased waiting times, and greater
inclusion of social supports.
Revisiting Visiting: Increasing Family Presence
and Participation
Christa Grim, Patient and Family Advisor; Rita Linnenkamp,
RN, BSN, Charge Nurse, Prep and Pre-Anesthesia Testing;
Sherry Perkins, PhD, RN, Chief Operating Officer/Chief Nursing
Officer; Anne Arundel Medical Center, Annapolis, MD
AAMC transformed a five year old visiting policy titled
“Visiting and Visitor Control” to “Family Presence and
Participation” by partnering with patient and family advisors,
and collaborating with a multidisciplinary team in our efforts
to become more patient- and family-centered.
Teresa Pasquini, Patient and Family Advocate; Charles
Saldanha, MD, Chief Psychiatrist; Contra Costa Regional
Medical Center, Martinez, CA
17
Completing the Team: A Training Program to
Support Staff in Integrating a Patient’s Support
Person into the Clinical Environment
Libby Hoy, BS, Founder, Patient & Family Centered Care
Partners, Inc.; Stephanie Stembridge, BA, Family Advocate;
Long Beach Memorial Medical Center, Long Beach, CA
Completing the Team Training provides staff the opportunity
to express concerns, learn skills related to partnership, and
to practice those skills while increasing their understanding
of the benefits of integrating patients’ family members into
the hospital environment.
A6
Instructional Design for New Graduate Nurses:
Teaching Patients and Families
Susan Brandt, Parent; Ms. Wayne Neal, MA, RN-BC, RN,
Manager, Patient/Family Education; Children’s National
Medical Center, Washington, DC
m o n day
The purpose of the formal instructional design is to teach
the novice nurse principles of patient/family education. This
design facilitates active learning and develops knowledge
and skills to effectively teach patients and families based on
their unique needs.
A8
Reflections: Year Ten of a Patient and Family
Advisory Council
Renee Johnson, BA, Program Coordinator, MGH Cancer
Center Patient and Family Advisory Council; Massachusetts
General Hospital Cancer Center, Boston, MA
This presentation will offer reflections on the 10-year
experience of our academic cancer center’s adult Patient
and Family Advisory Council. Topics include how to sustain
effective partnerships with patients and families and their
role in health care re-design.
Getting the Most from Your Advisory Council
Meetings — Productive Meeting Facilitation
Putting Family-Centered Care into Action: Using
Simulation Training to Achieve Partnerships to Improve
Patient Outcomes
Lisa Morrise, MA, Patient and Family Centered Care
Coordinator; Primary Children’s Medical Center, Salt Lake
City, UT
Darlene Barkman, MA, Family Consultant; Elizabeth Steinmiller,
MSN, PMHCNS-BC, Clinical Nurse Specialist in Mental Health;
The Children’s Hospital of Philadelphia, Philadelphia, PA
The most common complaints about meetings are that
they are unproductive, often due to a lack of organization,
and that one or two persons “take over” the meeting. You
can overcome these issues by learning the art of meeting
facilitation.
Clinical leaders and family consultants partnered to create
and implement a simulation-based educational curriculum.
The goal of participation was to improve charge nurses’
assessment, communication skills, and to appropriately use
resources to partner better with families under stress.
A7
Developing and Implementing Mind-body Programs
and Practices Within a Patient- and Family-Centered
Framework
Rob Rutledge, MD, FRCPC, Radiation Oncologist, Nova Scotia
Cancer Centre/Co-Founder, Healing and Cancer Foundation/
Associate Professor, Faculty of Medicine, Dalhousie University;
Halifax, Nova Scotia, Canada; Liz Crocker, MEd, Vice Chair,
Board of Directors, Institute for Patient- and Family-Centered
Care/Consultant, Dalhousie School of Medicine; Nova Scotia,
Canada; Joanne Cohen-Katz, PhD, Co-Director; Susan
Wiley, MD, Co-Director; Lesley Williams, Teacher/Former
Patient; Lehigh Valley Health Network Center for Mindfulness,
Allentown, PA; Sandra Smeeding, PhD, CNS, FNP, Founder,
Integrative Health Program and Clinic (IHPC)/Veterans Affairs
(VA) Salt Lake City Health Care System/Adjunct Faculty,
University of Utah College of Health and College of Nursing;
Salt Lake City, UT
18
In this session, clinicians,
researchers, and patients and
family members will share their
experience creating and delivering mind-body programs in a
variety of health care settings. Presenters will illustrate
strategies for gaining support from leadership and ways to
sustain mind-body programs once they are created. An
experiential exercise and time for questions and answers will
be included.
A9
Walk a Mile in My Shoes: Patients’ and Providers’
Perceptions of Electronic Personal Health Records
Christine Abbott, Administrative Clerk, Department of Family
Services; Georgia Health Sciences Medical Center; Christine
O’Meara, MA, MPH, Program Development Coordinator;
Georgia Health Sciences University Center for Patient- and
Family-Centered Care; Augusta, GA
Ethical issues, disadvantages, and advantages of using
electronic Personal Health Records (PHR) will be explored.
Participant input is juxtaposed against patients’/providers’
perceptions of PHRs from an Agency for Healthcare
Research and Quality-funded (AHRQ) hypertension study in
two Georgia Health Sciences University outpatient clinics.
Creating a Patient/Family Friendly Electronic Medical
Record Tool to Increase Patient and Family Engagement
Theresa May, BSN, MA, RN, Clinical Education and Practice
Manager; Renee Pellinger, BA, Chair, Family Advisory Council;
Children’s Hospitals and Clinics of Minnesota, Minneapolis, MN
A Children’s Family Advisory team responded to parent
feedback and worked to develop a user-friendly electronic
medical record tool to provide families access to real-time
data regarding their child’s clinical condition.
A10
2:15 – 3:30 pm
Beyond Bricks and Mortar to Patient- and FamilyCentered Care: Early Parent and Child Involvement
in the Development and Implementation of a New
Pediatric Hospital Building
Major Breakouts(B1-B5)
Natalie Bushaw, Parent Advisor; Lora Harding Dundek, MPH,
Manager, Birth and Family Education and Family Support
Services; Fairview HealthServices, Minneapolis, MN
Over five years of planning and implementation of a new
hospital building, parents and children were involved in
every step of the way, from facility design to program
planning, innovation of care and development, and
embedding of a new culture.
B1
Beyond the Bedside: A Patient Perspective of
Partnership and Safety
Tiffany Christensen, BFA, CEO; Sick Girl Speaks, Inc., Patient
Leader, TeamSTEPPS Master Trainer, Author, Co-Chair of the
Duke Patient Advocacy Council, Durham, NC
“Beyond the Bedside: A Patient
Perspective of Partnership and Safety”
is a completely unique program
combining the experiences of author,
national speaker, and two-time double
lung transplant recipient, with
TeamSTEPPS tools.
Designing a One-in-a-Million Family Center with Families
Vivian McCombie, Family Advisory Council Member; Oscar
Mesa, BHSA, Manager, Michael Fux Family Center; Erick
Pritchett, Parent, Co-Chair, Family Advisory Council; Janet Bell
Taylor, MBA, Director, Patient Family Services; Miami Children’s
Hospital, Miami, FL
To demonstrate that the partnership of families, architects,
designers, and administration leaders can create a patientand family-centered center. This presentation will show the
critical importance of family inclusion in all phases of facility
design and construction.
12:45 – 2:00 pm
Exhibit Hall: Staffed Posters, Exhibits, and Lunch
Special Luncheon with Jim Conway
($55)
Learning and Improving Health Care Systems: The
Patient, the Family, the Public
Together we seek a continuously
learning and improving health care
system. Getting there requires a
supportive environment, concrete
learning processes and practices,
leadership behaviors that provide
reinforcement, and more. Jim Conway,
a member of the IOM Committee on the Learning
Health Care System in America, will outline the vision,
key gaps, and path forward focused on the patient, the
family, and the public.
“This is the future of nursing
and medical practice — we must
move the focus away from
providers to the patients where it
has always belonged.”
Implementing Family Partnerships in Improvement: The
Vermont Oxford Network (VON)
Jeffrey Horbar, Chief Executive and Scientific Officer, Vermont
Oxford Network, University of Vermont; Burlington, VT;
Joanna Celenza, Family Leader and Faculty for Improvement
Collaboratives, Vermont Oxford Network; Lebanon, NH
The mission of the
Vermont Oxford Network
(VON) is to improve the
quality and safety of
medical care for newborn
infants and their families
through a coordinated
program of research, education, and quality improvement
projects. VON has included family advisors on
multidisciplinary improvement teams since 1998 in the
context of the Neonatal Intensive Care Quality (NICQ)
Collaboratives. The role of family advisors in these
collaboratives has evolved and deepened as new
opportunities for incorporating the family perspective have
been created. Family advisors are equal members of the
multidisciplinary teams that have examined improvements
across many different clinical areas and have served as
faculty for the most recent improvement collaboratives. This
session will share ways in which VON continues to
strengthen the engagement of family advisors in working to
improve the outcomes of infants and their families.
m o n day
LUNCH
B2
B3
Advocacy As a Tool to Promote High-Quality,
Patient- and Family-Centered Health Care: Making
Communities a Force for Change to Improve Care for
Vulnerable Patients
Jennifer Sweeney, Director, Americans for Quality Health Care;
National Partnership for Women & Families, Washington, DC
This session will share lessons learned by the Campaign for
Better Care and provide specific tools to help participants
become change-makers in their communities. Strategies to
build strong local coalitions to make our health care system
more patient- and family-centered will be identified.
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B4
Strategies to Achieve Patient-Centered Primary
Care: What Are We Doing at the Innovation Center
at CMS?
Richard J. Baron, MD, Director, Seamless Care Models Group,
Center for Medicare and Medicaid Innovation; U.S. Department
of Health and Human Services, Washington, DC
New models of primary care delivery will
require new models of payment support.
Those who provide Primary Care are
frustrated by the challenges they face in
meeting their patients’ needs, and are very
open to re-designing their practices. New
models of payment can be designed to
provide the support providers need to design their practices
based on patient needs rather than volume of visits.
Engaging patients as design partners in these efforts will be
critical to success.
B5
m o n day
Innovation in Using Health Information Technology
to Enhance Patient and Family Engagements – A
Conversation
Farzad Mostashari, MD, ScM, National Coordinator, Health
Information Technology, Office of the National Coordinator
for Health Information Technology, U.S. Department of Health
and Human Services; Christine Bechtel, MA, Vice President,
National Partnership for Women & Families; Washington, DC
Join the National
Coordinator for Health
Information Technology in
a provocative discussion
about the federal
requirements for
“meaningful use” of health
information technology and how it relates to engaging
patients and families. This discussion will explore advances in
health information technology that support patient and family
engagement in care and decision-making as well as their
involvement in the design of future technology innovation.
3:30 – 3:45 pm
BREAK
3:45 – 5:00 pm
Concurrent Sessions (C1-C10)
C1
Engaging Patients and Families in Health Care: The
Vanderbilt Experience
Mary Ann Peugeot, CPA, Chair, Patient/Family Advisory Council;
Vanderbilt University Medical Center; David R. Posch, MS, Chief
Executive Officer, Vanderbilt University Hospital and Clinics/
Executive Director, Vanderbilt Medical Group; Nashville, TN
This program will show how senior leadership at Vanderbilt
has actively utilized the input of the advisory council for
short-term and long-term planning for the institution.
20
C2
Yorkshire Neonatal Network, United Kingdom
Challenging the Principles of Family Care Through
Benchmarking: A Partnership Approach to Neonatal
Care Across Neonatal Networks
Gwynn Bissell, RGN, Education and Parent Lead, Leeds
Teaching Hospitals; Denise Stewart, Family Representative,
Bradford Royal Infirmary; Yorkshire Neonatal Network, West
Yorkshire, United Kingdom
The programme developed national drivers; directing Neonatal
Networks to take greater responsibility in quality control of care
and support offered to babies and families. Using a partnership
approach to benchmarking care processes offered impartiality
and preserved the family focus.
The Journey of Developing a Parental Involvement
Pathway Across a Neonatal Network
Gwynn Bissell, RGN, Education and Parent Lead, Leeds
Teaching Hospitals; Denise Stewart, Family Representative,
Bradford Royal Infirmary; Yorkshire Neonatal Network, West
Yorkshire, United Kingdom
This project was developed over a number of years following
numerous catalysts. Despite the many dissenters along the
way, success has prevailed. Families and parents now have
many forums to deliver their voice.
C3
Patient- and Family-Centered Care and Patient
Satisfaction and Loyalty: Shared Success Through
Collaborative Partnership
Laura Fohn, MHA, Project Manager; Michelle Mirsky, BS, Family
Liaison; Dell Children’s Medical Center, Austin, TX
By forging an intentional collaborative partnership between
patient- and family-centered care and process improvement
initiatives around Patient Satisfaction and Loyalty, Dell
Children’s Medical Center of Central Texas was able to show
significant improvement in key low-scoring NRC Picker
satisfaction survey questions.
Embracing Families in Performance Improvement
Initiatives Leads to Positive Outcomes: Family and
Staff Working Together to Streamline Registration and
Scheduling Processes and Procedures
Pat O’Hanlon, Family Faculty; Donna Provenzano, CTRS,
Director Family-Centered Care; Linda Waddell, Family Faculty;
Children’s Specialized Hospital, New Brunswick, NJ
This presentation will share how families and staff
collaborated to implement lasting changes to our registration
and scheduling processes. Families partnered with
senior leadership and staff on performance improvement
committees which resulted in increased patient and family
satisfaction scores.
C4
C8
Designing the Best: Engaging Stakeholders in Primary
Care Transformation
Integrative Therapy Services for People Coping with
Cancer: Advocating for Patients and Families to Create
a Personalized Care Path for Comfort, Healing, and
Well-Being
Susan Edgman-Levitan, PA, Executive Director, Stoeckle
Center for Primary Care Innovation; Massachusetts General
Hospital, Boston, MA
This session will focus on methods of
engaging all of the stakeholders who are
essential to achieving the best models of
practice in primary care. It will feature
examples of how these methods have been
used to redesign practices that achieve the
Triple Aim (improving the experience of
care, improving the health of populations, and reducing per
capita costs of health care) and provide the best quality of
life for clinicians and staff.
C5
Utilizing Patient and Family Advisors to Develop
Strategies that Improve the Transition of Care Between
Critical Care Departments
Lisa Beck, RN, BsCN, MSN-CNS, Critical Care, Director
ED/ICU/Trauma; Keith Taylor, Chair, Patient Family Advisory
Council; Thunder Bay Regional Health Sciences Centre,
C6
Collaboration At Its Finest: Patient Safety Liaison Rounds
Sherrill Beaman, RHIA, CPHQ, MPH, Director of Quality
Programs; Shannon Ellis, Patient/Family Advisor; Heritage
Hospital, Tarboro, NC; Kim Blanton, Patient/Family Advisor;
Susan Ingram, RN, MSN, Manager, Patient Safety; Vidant
Medical Center, Greenville, NC
To expedite goals related to patient safety, quality and
exceptional experiences in care, Vidant Health developed
models of patient safety rounding. Both of these models
emphasize collaboration with patient and family advisor.
C7
On-Boarding New Employees to Foster a Culture of
Patient- and Family-Centered Care
Elizabeth Lane-Davies, Volunteer; Marilyn Potgiesser, RN,
Coordinator, Patient and Family Centered Care; Bronson
Healthcare Group, Kalamazoo, MI
Learn how patient and family advisors at Bronson
Healthcare are strategically involved in the on-boarding of
new employees to foster Bronson’s culture of patient- and
family-centered care.
This session will showcase and discuss resources needed
to develop a patient, family, and community-driven program
for integrative medicine services within a community
cancer center. Developmental concepts, program structure,
marketing of services, and lessons learned will be shared.
Meeting the Needs of Patients Who Frequently Present
to the Emergency Department with Persistent Pain
Carolyn Hullick, BMed, DipPaed, Fellow of the Australasian
College of Emergency Medicine, Director of Emergency
Medicine, John Hunter Hospital and Greater Newcastle Acute
Care Hospitals; Hunter New England Health, Newcastle, New
South Wales, Australia
A coordinated and patient centred model of care for people
with chronic pain, who frequently attend the Emergency
Department, was implemented. Results include positive
feedback from patients and staff, along with a reduction in
inpatient bed days and unnecessary investigations.
C9
“My Child Isn’t Getting Better”: A Collaborative
Journey with Bereaved Parents
Rhonda Cardenas, Proud Parent; Patricia Wells, MSN, RN, CNS,
PNP, Director, Patient- and Family-Centered Care; MD Anderson
Cancer Center, The Children’s Cancer Hospital, Houston, TX
For three years, the Supportive Care Committee has made
a dramatic impact in the way staff, parents, and patients
collaborate to provide the best end of life care possible.
Background, organization, outcomes, goals, and evaluation
of this group will be discussed.
m o n day
Patient Family Advisors (PFAs) provide invaluable insight
and direction to improving the transfer experience between
departments. Families of critically ill patients requiring
immediate transfer need to feel supported, informed, and
connected to caregivers throughout the continuum of care.
Jennifer Currin-McCulloch, LMSW, OSW-C, Oncology Social
Worker; Toby Hollenberg, Patient and Family Advocate; Curtis
& Elizabeth Anderson Cancer Institute, Memorial Health
University Medical Center, Savannah, GA
C10
Assessing Family-Provider Partnerships and
Satisfaction with Services Among U.S. Children with
Special Health Care Needs
Diana Denboba, Branch Chief, Integrated Services Branch,
Division of Children with Special Health Needs; Mary Kay
Kenney, PhD, Health Statistician; Health Resources and
Services Administration/Maternal and Child Health Bureau,
Rockville, MD
During this session, we document ongoing federal
efforts to monitor and foster family-provider partnerships
and satisfaction with services necessary for successful
community-based systems for families of children with
special health care needs.
5:00 – 6:30 pm
Welcome Reception
Exhibit Hall: Posters and Exhibits
21
conference sessions
8:00 – 9:15 am
Plenary Session — Picker Lecture
The Future of Health Care
Don Berwick, MD, Former Administrator, Centers for Medicare
and Medicaid Services, U.S. Department of Health and
Human Services
7:00 am – 8:00 am Continental Breakfast,
Don Berwick is one of
the leading advocates
for high-quality health
care in the United States. He recently
served as the administrator of the
federal government’s Centers for
Medicare and Medicaid Services. For
the prior 22 years, he was the founding
CEO of the Institute for Healthcare
Improvement, a nonprofit organization dedicated to
improving health care around the world. A pediatrician by
background, he has also been a member of the faculty of
the Harvard Medical School.
T u e s day
day at-a-glance
Dr. Berwick sees tremendous unrealized potential in
systems of health care delivery worldwide. He presents
a compelling vision of how meaningful partnerships with
patients and families combined with thoughtfully designed
information technology, care models, and governmental
policies can lead to innovative health care systems that
are optimally configured to meet the needs of patients,
families, clinicians, communities, and payers. Dr. Berwick
is an articulate advocate for high-quality, safe, collaborative
care, as well as for the moral imperative to provide care for
all who need it. His sustained focus on achieving excellence
in all aspects of health care outcomes has gained him
a reputation as a powerful motivator who can inspire
individuals and institutions to do their work better.
(Networking Breakfast for
Patient and Family Leaders)
Poster Displays, Exhibits,
Table Talks
8:00 am – 9:15 am Opening Plenary — Picker
Lecture
9:15 am – 9:45 am Break — Exhibits / Poster
Displays
10:00 am – 11:15 am Concurrent Sessions
(D1 – D10)
11:15 am – 11:30 am Break
(E1 – E10)
12:45 pm – 2:00 pm Lunch — Exhibits/Posters/
Table Talks
Lunch Grab and Gab (Topics to
be announced at conference)
Special Luncheon
Patient- and Family-Centered
Canadian Models of Excellence
— Meaningful Engagement:
Let’s Spread the Learning
Host: Canadian Health
Services Research Foundation
(F1 – F10)
9:15 – 9:45 am
Exhibit Hall: Posters and Exhibits
3:45 pm – 4:00 pm Break
10:00 – 11:15 am
Concurrent Sessions (D1-D10)
“…extremely helpful in
understanding the interdependence
of safety, quality care, and patientand family-centered care.”
22
(G1 – G10)
6:30 pm Networking Dinner at
D1
Family-Centered Rounding—Making it Stick! How to
Create and Sustain Family-Centered Rounds Utilizing
Lean Organizational Change Strategies
Michele Ashland, BA, Lead Parent, Family Centered Care;
Susan Herman, MSN in Nursing Administration, Magnet
Program Director; Joseph Kim, MD, Medical Director, Pediatric
Hospitalist Program/Acute Care Units; Karen Wayman, PhD,
Packard Children’s Endowed Director of Family Centered
Care; Packard Children’s Hospital, Palo Alto, CA
conference sessions
This session is an innovative approach to creating and
sustaining Family-Centered Rounds in a pediatric academic
setting. A multidisciplinary team (physicians, nurses,
ancillary staff, family-centered care staff, and parents)
utilized Lean organizational change strategies to plan,
implement, sustain, and measure family-centered rounds.
Advocate, Educate, Organize: The Surprising Journey
of Patient- and Family-Centered Care in a Pediatric
Cancer Hospital
D2
This discussion will focus on the many, unique ways
that patients and family members are partnering and
collaborating with the health care team to weave the threads
of patient- and family-centered care throughout the fabric of
the Children’s Cancer Hospital.
Build It and They WILL Come – Patient Engagement on
Quality Initiatives
Charles Borden, MBA, Associate Executive Director, Quality &
Patient Safety; Sharon Cross, LISW, Patient/Family Experience
Advisor Program Manager; Peter Labita, Patient Experience
Advisor; James Cancer Hospital at Ohio State University
Medical Center, Columbus, OH
Successful implementation of patient involvement in
hospital meetings can be a hard goal to achieve. This
session will focus on best practices for including advisors
at the table while ensuring a positive experience for both
patients and staff.
Grassroots…Growing a Patient/Family Advisor
Program from the Bottom Up!
Sharon Cross, LISW, Patient/Family Experience Advisor
Program Manager; Cortney Forward, Patient/Family Experience
Advisor; Peter Labita, Patient Experience Advisor; Ohio State
University Medical Center, Columbus, OH
D3
Community Action for Prenatal Care: An Innovative
Program in New York State to Reduce Mother-to-Child
Transmission of HIV
Janet Campbell-Lugo, Patient Advisor, Maribel Montanez,
BA, Assistant Program Coordinator; Bronx Lebanon Hospital
Center, Bronx, NY; Patricia Doyle, LCSW, Director, Community
Action for Prenatal Care; New York State Department of Health
AIDS Institute, Albany, NY
This session describes the benefits of integrating patients
as advisors in a program for pregnant women to reduce
transmission of HIV. Presenters will describe how patients
are selected, trained, and mentored as they assume
increasingly responsible roles within the program.
D4
Understanding the Needs of Young People in a
Paediatric Hospital
D5
Patient and Family Orientation: Enhancing Information
and Access to Services
Kim Buettner, BA, Supervisor, Patient Education and Advisory
Program; Nancy Newman, MSW, LCSW, Director, Patient
Support and Advocacy; Monica Vakiner, RN, BSN, Patient
Advisor; Moffitt Cancer Center, Tampa, FL
A collaborative group of staff and advisors created a Patient
and Family Orientation program with goals of providing a
welcoming atmosphere, decreasing anxiety, increasing
access to support services, and preparing the patient and
family for being partners in their care.
D6
Transforming the Patient Experience: Bringing to
Life a Patient and Family-Centered Interprofessional
Collaborative Practice Model
Anndale McTavish, MA, Co-Chair, Patient and Family Advisory
Council; Cynthia Phillips, RRT, MEd, Project Manager, Model
of Care; Marla Rosen, Patient Experience Advisor; Kingston
General Hospital, Kingston, Ontario, Canada
This presentation describes the new patient- and familycentered model of care at the Kingston General Hospital.
The redesign process and pre-implementation planning
work for the model of care are outlined in detail and
outcomes are reviewed.
t u e s day
One person can make a difference! After a staff member
became a patient at the hospital where they worked, they
envisioned an organization that received feedback from
patients and families in more ways than just Press Ganey
surveying.
Rhonda Armstrong-Trevino, AD, Parent Coordinator; Patricia
Wells, MSN, RN,CNS, PNP, Director, Patient/Family Centered
Care; MD Anderson Cancer Center, Houston, TX
Introducing Patient- and Family-Centred Care at The
Ottawa Hospital – An Innovative Patient and Family
Member Engagement Process
Gwen Barton, BNSc, MHA, Transformation Project Manager;
Brian McKee, PhD (c), Patient Family Advisor, Co-Chair,
Program Development Committee; The Ottawa Hospital,
Ottawa, Ontario, Canada
The Ottawa Hospital established a patient and family panel
using a unique ‘civic lottery’ process. Over three days, the
panel learned more about the Cancer Program, shared
experiences, and established recommendations to launch
the organization’s patient- and family-centred care journey.
Elizabeth Harnett, Head of the Clinical Governance Unit; The
Children’s Hospital at Westmead, Sydney, New South Wales,
Australia
The Children’s Hospital at Westmead has readdressed
the gap in our understanding of the experiences of young
people through annual young peoples’ satisfaction surveys
and the establishment of a Youth Advisory Council to help
meet their needs.
23
conference sessions
D7
Interprofessional Bedside Patient- and FamilyCentered Rounding to Improve Patient Care,
Patient Safety, and Resident Education on an Adult
Medicine Unit
Jeffrey Schlaudecker, MD, Assistant Professor of Family and
Community Medicine; Anna Stecher, BS, Medical Student;
Steve Warnick, MD, Chief Resident, Family Medicine and
Psychiatry Combined Residency Program; University of
Cincinnati, Cincinnati, OH
This presentation and discussion will describe how other
programs can implement Patient- and Family-Centered
Rounding. Role-play will be included in this fun and dynamic
presentation allowing other programs to dramatically
improve the experience of inpatient family medicine for
attending physicians, residents, and patients.
D8
Unleashing the Culture: Reaching Hearts and Minds
Through Patient- and Family-Centered Care Training at
a Safety Net Teaching Hospital
T u e s day
Scott F. Davies, MD, Chief, Department of Internal Medicine;
Sheila Delaney Moroney, MPH, Director, Patient Experience
Services/Patient- and Family-Centered Care; Hennepin County
Medical Center, Minneapolis, MN
Through a nine-hour curriculum designed to reach the
hearts and minds of more than 3,500 hospital staff and
physicians, Hennepin County Medical Center is driving
culture change to ensure that patient- and family-centered
guiding principles and behaviors are hardwired.
D9
D10
An Exploration of Patient-Centered Architecture at
Dartmouth-Hitchcock: Theory, Practice, and the Patient
and Family Viewpoint
Gail A. Dahlstrom, MHSA, Vice President, Facilities
Management; Linda C. Wilkinson, MBA, Coordinator, Patientand Family-Centered Care; Devyn R. Young, MPH; DartmouthHitchcock, Lebanon, NH
This presentation represents a three-part exploration of how
architectural design of health care facilities can be used
to promote patient satisfaction and patient- and familycentered care principles. Theoretical potential, applied
reality, and a site-specific research model will be shared.
11:15 – 11:30 am
BREAK
11:30 am – 12:45 pm
Concurrent Sessions (E1-10)
E1
Improving Quality and Safety Through Patient-Centred
Care: An Australian Perspective
Nicola Dunbar, BSc, PhD, MPS, Program Manager; Australian
Commission on Safety and Quality in Health Care, Sydney, New
South Wales, Australia
The Australian Commission on Safety and Quality in
Health Care is leading a national approach to supporting
improvements in systems and capacity for partnering with
patients and consumers in Australia.
Aligning Passions: What Matters Most When
Partnering with Patients and Families for Quality,
Safety, and Satisfaction
E2
Bev Crider, President and Chief Executive Officer; Bev Crider,
LLC, Trenton, MI
Eliot Greene, Teen Advisory Committee Member; Christine
Rich, MS, BSN, RN, Staff Nurse III; Amy Rucki, Co-Chair,
Teen Advisory Committee Member; Jessica Strzelecki,
CCLS, Certified Child Life Specialist; William Tulip, Teen
Advisory Committee Member; Ashley Quan, Co-Chair, Teen
Coordinator, Teen Advisory Committee; Children’s Hospital
Boston, Boston, MA
Partnering for quality, safety, and satisfaction relies on a
shared vision of priorities and agreement on strategies to
achieve goals. An informal query of “What Matters Most”
reveals subtle, yet important, differences in the perceptions
of key stakeholders.
Evolution of the Teen Advisory Committee, Children’s
Hospital Boston: Review of a Decade of Work
Adolescents and committee facilitators will present the work
of this dynamic committee including input into hospital
policy, focus group participation, and the wide variety of
projects completed. This information will be presented from
both the adolescent and staff perspective.
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conference sessions
Improving Cancer Care for Adolescents and Young
Adults (AYA) at MD Anderson Cancer Center Through
the Creation of an AYA Advisory Council
Alma Faz, BS, RT (R)(CT), Radiologic Technologist, CoFacilitator, AYA Advisory Council; Erin Frazier, MS, PA-C,
Physician Assistant, Co-Facilitator, AYA Advisory Council;
Sandra Medina, MS, LPA, LPC, Vocational Counselor, CoFacilitator, AYA Advisory Council; Chad Tremont, BS, Research
Assistant I, Co-Facilitator, AYA Advisory Council; MD Anderson
Cancer Center, Houston, TX
Presenters will provide details on creating and maintaining
an AYA Advisory Council that consists of patients and staff.
The process for developing goals will be discussed. Finally,
accomplishments and lessons learned during our two years
of existence will be shared.
E3
Looking Through the Lens of Health Literacy: A
Partnership Between the Family Advisory Committee
and Health Care Team
Rita Higgins, BA, Parent; Carol Klingbeil, MS, RN,CPNP,
Advanced Practice Nurse Educational Services; Children’s
Hospital of Wisconsin, Milwaukee, WI
E4
Cultural Transformation — A Pivotal Transformation for
Health Care in This Country
Tracy W. Gaudet, MD, Director, Office of
Patient Centered Care and Transformation;
U.S. Department of Veterans Affairs,
Washington, DC
This session will identify strategies that
can be used to influence change within
a health care environment that seeks
to implement the core concepts for patient-centered care
approaches.
Stephanie Adam, RN, BSN, Assistant Nurse Manager, NICU;
Ann Dowling, BS, NICU Family Support Specialist; Women and
Infants Hospital, Providence, RI
Including families in bedside shift change report is a
concrete way to operationalize the principles of familycentered care. The Family Advisory Council and Shared
Governance committees have worked together to develop
tools that bring this concept to the bedside.
E6
Patient-Centered Communication in Everyday
Interactions: The CHOP Care Network’s Physician
Practice Strategy
Jill Golde, MS, Senior Vice President, Client Experience,
Leebov Golde & Associates; Amy Lambert, BA, Senior Vice
President, CHOP Care Network, The Children’s Hospital of
Philadelphia; Philadelphia, PA
The Children’s Hospital of Philadelphia’s Outpatient Care
Network (CHOP Care Network) implemented a far-reaching,
long-term strategy to build physician and staff skills in
patient- and family-centered communication.
E7
Patient- and Family-Centered Care “10 Best Practices”:
Disseminating Information to Improve Regional
Pediatric Care
Elizabeth DuBois, RN, MS, CPN, NE-BC, Manager, Pediatric
Inpatient Services; Siobhan Reid, Parent, Co-Chair Parent
Advisory Committee; Walter Rosenfeld, MD, FAAP, FSAHM,
Chair of Pediatrics; Ethan Wiener, MD, FAAP, Associate
Director, Pediatric Emergency Medicine; Goryeb Children’s
Hospital, Atlantic Health System, Morristown, NJ
Goryeb Children’s Hospital developed a 10-step “Best
Practice” model to improve quality and safety and has now
expanded this effort to improve emergency and other care
for children in our region.
t u e s day
A strong collaborative partnership between providers and
families has been successful at raising awareness of the
impact of low health literacy on families’ experiences in our
organization. This presentation focuses on projects that
have changed our communication with families.
Tools for Successfully Partnering with Parents During
Bedside Shift Change Report in the NICU
E5
Partners in Care: Journey in Changing the View of
Family from “Visitors” to “Partners in Care”
Maureen Berkan, RNC-NIC, NICU Registered Nurse; Lori
Chudnofsky, RNC-NIC, NICU Assistant Nurse Manager; Susan
Griffith, RN, NICU Registered Nurse; Leah Rutz, BA, Operations
Supervisor; Frank Sanborn, NICU Parent Advisor; University of
Washington Medical Center, Seattle, WA
This presentation is designed to share the process and
outcomes of one neonatal unit’s experience with increasing
family participation in bedside care.
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conference sessions
E8
Family-Centered Care or Poor Professional
Boundaries? Clinician Use of Social Media
to Engage with Patients and Families Helps a
Hospital Redefine Therapeutic Boundaries
Deborah Braidic, MA, Manager, Web Content and Internal
Communications; Scott Ferguson, LCSW, Administrator, FamilyCentered Care Support Services; Children’s Hospital Los
Angeles, Los Angeles, CA
Social media blurs traditional boundaries, and in health care
settings, can blur professional therapeutic boundaries. This
session will demonstrate how a stronger social media policy
helped a hospital realign house-wide understanding and
practice of the core principles of family-centered care.
E9
Illusion vs. Reality: The Challenges and Benefits of
Truly Applying the Core Concepts of Patient- and
Family-Centered Care in a Community-Based, Family
Support Program
T u e s day
Lori Schwartz, PhD, Consultant; Chicago, IL
Challenges and benefits of applying core concepts of
patient- and family-centered care in a community-based,
family support program are addressed through slide
presentation, interactive discussion, group activity, and
videotaped client interview. Program changes that facilitated
the process will be described.
E10
Designing the Heart Institute Ambulatory Clinic at
Cincinnati Children’s Hospital to Deliver Outstanding
Patient-Focused Care—Lessons Learned from Working
with the Family Advisory Council
John Blignaut, AIA, ACHA, LEED AP, Partner, GBBN Architects;
Mary Dietrich, BSc, Design Manager, Kolar Design; Anya
Carl-Heinbaugh, MBA, Director of Space Planning and Design;
Melissa Klaassen, Patient/Family Advisor, Family Advisory
Council Representative; Cincinnati Children’s Hospital Medical
Center, Cincinnati, OH
Involving families in the design process and encouraging
them to articulate their ideal patient experience can
reap huge benefits for understanding their needs. This
presentation will discuss the lessons learned over a number
of years of listening to families.
12:45- 2:00 pm
LUNCH
Exhibit Hall: Posters, Exhibits, and Lunch
Special Luncheon ($55)
Patient- and Family-Centered Canadian Models
of Excellence — Meaningful Engagement: Let’s
Spread the Learning
Host: Canadian Health Services Research Foundation
This luncheon highlights
the good work of patients,
families, and citizens,
partnering with health care leaders and planners, in
health care quality improvement. The Patient
Engagement Projects (PEP) initiative of luncheon
sponsor, the Canadian Health Services Research
Foundation (CHSRF), supports teams from health care
organizations across Canada to improve the quality of
care and the effectiveness and efficiency of health
services by engaging patients and their families in
design, delivery, and evaluation. CHSRF is an
independent organization dedicated to accelerating
health care improvement and transformation for
Canadians. CHSRF collaborates with governments,
policymakers, and health system leaders to convert
evidence and innovative practices into actionable
policies, programs, tools, and leadership development.
2:15 – 3:45 pm
Concurrent Sessions (F1-F10)
F1
How Do You Know When You Have Arrived? Leading
and Lagging Indicators of Success Through
Implementation of Both Unit and System Patient- and
Family-Centered Initiatives
Lona Bryant, MSN, RN, Patient-Centered Quality Improvement
Consultant; Terri Nuss, MS, MBA, Vice President, Patient
Centeredness; Baylor Health Care System, Dallas, TX; Kecia
Kelly, MBA-HCM, BSN, RN, Director of Maternal, Newborn and
NICU Services; Paul and Judy Andrews Women’s Hospital;
Baylor All Saints Medical Centers, Fort Worth, TX
Launching a key initiative, attendees will learn of the
inspiration and intentional actions needed at the unit level,
and the defined steps needed to implement and spread at
the macro level in a 14-hospital health care system.
F2
Thunder Bay Regional Health Sciences Centre,
Influencing Change and Improving Quality with Patient
and Family Advisors
Julija Kelecevic, MD, PhD, (ABD), Bioethicist; Bonnie Nicholas,
RN, CNCC(C), CPTC, Patient Family Centred Care Lead; Keith
Taylor, Chair, Patient Family Advisor; Thunder Bay Regional
Health Sciences Centre, Thunder Bay, Ontario, Canada
Patient and Family Advisors (PFAs) are the heart of Patient
Family Centred Care. They provided invaluable insight to
improve the experience of care for everyone. Our culture
has changed because of our PFAs, and we will share how
yours can too!
26
conference sessions
Patient and Family Centred Care: From the Boardroom
to the Bedside
Read All About It!: Using Media Formats to Involve
Veterans and Their Family in Recovery
Rhonda Crocker Ellacott, RN, HBScN, MA, (CNS), EdD,
Executive Vice President, Patient Care, Health Professions/
Chief Nursing Executive; Bonnie Nicholas, RN, CNCC(C),
CPTC, Patient Family Centred Care Lead; Keith Taylor, Chair,
Patient Family Advisory Council; Thunder Bay Regional Health
Sciences Centre, Thunder Bay, Ontario, Canada
Crystal Anderson, PhD, LCSW, BCD, Director, Psychosocial
Rehabilitation and Recovery Center (PRRC); Elizabeth A. Bass,
PsyD; Local Recovery Coordinator; Betty Davis, PRRC Veteran
and Facilitator; Paul Jenkins, PRRC Veteran and Facilitator;
Donna Tate, Family Support Group Member, PRRC; Atlanta VA
Medical Center, Decatur, GA
Quality patient care is a laudible goal – and difficult to reach.
A blueprint for system-wide change is needed. Patient and
family centred care became our blueprint. Our approach
through Patient and Family Centred Care Corporate
Strategy Development proved to be just the right model.
The family-written newsletter was created to engage
Veterans’ families in topics related to mental illness and
recovery. This presentation will introduce ways to utilize
media to help foster empowerment for the Veterans and
families creating the newsletters as well as for readers. The
process of this journey will be explored and the outcomes
thus far will be discussed.
F3
The Road Less Traveled: An Adult Combined Medical
and Surgical Intensive Care Unit’s Journey to Integrate
Patient and Family into the Health Care Team
Michael Benninghoff, DO, Medical Director; Donna Casey, RN,
Nurse Manager; Joanne Garcia, RN, Staff Nurse/Chair Patientand Family-Centered Care Unit Based Council; Michael
Gervay, Patient/Family Advisor; Dannette Mitchell, BSN, RN;
Christiana Care Health System, Wilmington, DE
F4
Peers as Recovery Mentors for Recurrently
Hospitalized Psychiatric Patients
Kimberly Guy, Recovery Mentor, Research Associate, Peer
Support Supervisor, Program for Research and Community
Health; Connecticut Mental Health Center; William Sledge, MD,
George D. and Esther S. Gross Professor of Psychiatry; Yale
University, Yale New Haven Psychiatric Hospital, New Haven, CT
This session will highlight a random controlled design,
feasibility study testing whether having peer mentors is
associated with a significant reduction of re-hospitalization
for patients with a recent history of recurrent hospitalization.
It will feature an account by a mentor.
Development of a National Patient and Family
Experience of Care Survey
Leslie Hazle, MS, RN, CPN, Director of Patient Resources,
Cystic Fibrosis Foundation; Bethesda, MD; Karen Homa, PhD,
Improvement Specialist, Leadership Preventive Medicine
Residency Program; Dartmouth Hitchcock Medical Center;
Lebanon, NH; Kathryn Sabadosa, MPH, Research Associate,
The Dartmouth Institution for Health Policy and Clinic Practice;
Lebanon, NH; Teresa Schindler, MS, RD, CF Dietitian, Rainbow
Babies & Children’s Hospital; Cleveland, OH
The U.S. Cystic Fibrosis Foundation launched the
development of a nationwide patient and family experience
of care survey to further aid the 115 accredited centers to
improve care for the people with cystic fibrosis.
The Family Voice: Involving Families in the Drive to
Improve the Transition from Outpatient to Inpatient
Care
t u e s day
This multimedia presentation chronicles the journey of a
mixed medical and surgical adult intensive care unit’s quest
to integrate patients and families into the health care team.
Nursing shift-change hand-off at the patients’ bedside and
interdisciplinary rounds will be highlighted.
F5
Andrea Honesto, RRT; Susan Katz, Family Advisory Board,
Johns Hopkins Hospital, Baltimore, MD
A multidisciplinary team, including parents, was created to
improve the transition between outpatient chronic care and
inpatient acute care for cystic fibrosis patients.
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conference sessions
F6
F8
Evaluating Mind-body Programs and Practices
Within a Patient- and Family-Centered Framework
Using Six Sigma Methodology to Improve Daily
Communication Between Families and the Medical
Team in the Pediatric Intensive Care Unit
Elizabeth Hoge, MD, Research Scientist, Benson Henry
Mind-Body Medical Institute/Assistant Professor in Psychiatry,
Harvard Medical School; Boston, MA; Lara Hilton, MPH,
Senior Project Manager, Samueli Institute, Alexandria, VA/
Research Analyst, RAND Corporation; Santa Monica, CA;
Ruth Quillian Wolever, PhD, Research Director and Director,
Health Psychology, Duke Integrative Medicine/Director,
Behavioral Health & Lifestyle Coaching, Duke Diet and
Fitness Center/Assistant Professor, Duke University Medical
Center; Durham, NC; Nicole Kangas, PhD, Parent Lead,
Family Centered Care Metrics Team; Karen Wayman, PhD,
Director, Family Centered Care; Lucile Packard Children’s
Hospital at Stanford, Palo Alto, CA
This session will outline best
practices for evaluating mind-body
programs that are offered in a
patient- and family-centered environment. Panelists will share
methodology for effective evaluation, how to choose
quantitative and qualitative outcomes that are meaningful and
appropriately measure them, and how to successfully involve
patients and family members in the evaluation process.
T u e s day
F7
Georgia Health Sciences University,
Augusta, GA
The Role of Patient Advisors in the Curriculum
and Beyond
Kent Guion, MD, Vice President for Diversity and Inclusion;
Christine O’Meara, MA, MPH, Development Coordinator;
Georgia Health Sciences University, Augusta, GA; Bernard
Roberson, MS, Administrative Director, Patient and Family
Centered Care; Arthur Stone, Patient Advisor; Georgia Health
Sciences Health System, Augusta, GA
Patient advisors have historically participated in the
clinically-oriented functions. We report the experiences
of patient advisors participating in the classroom, online
learning communities, the health sciences university
accreditation, and strategic planning process as well as
community outreach activities.
Building Quality at the Bedside: Partnering with
Patients and Families Through Quality Unit Councils
Nettie Engels, BS, MEd, EdS, Patient Advisor/Family Faculty
Member; Sarah (Teri) Perry, RN, Vice President, Adult
Patient Care Services; Anthony (Bernard) Roberson, MSM,
Administrative Director, Patient Family Centered Care; Georgia
Health Sciences Health System, Augusta, GA
The use of Quality Unit Councils (QUC) enables health
care providers to improve quality measures through
collaborations. The councils utilize patient advisors, and the
principles and behavioral standards of Patient- and FamilyCentered Care as a guide to improvements.
28
Laura Czulada, DO; Patience Leino, BS, Family Advisor;
University of North Carolina, Pediatric Intensive Care Unit,
Chapel Hill, NC
This project utilized Six Sigma methodology with a
multidisciplinary team, including a family member, to define
and improve the current process of daily communication in a
20-bed closed multidisciplinary pediatric intensive care unit.
‘Ask Me 3™’ — A Family-Driven Campaign to Improve
Patient/Family/Provider Communication at the
University of Florida Pediatric Pulmonary Clinics
Angela Miney, BA, Family Partner; University of Florida
Pediatric Pulmonary Division, Gainesville, FL
The project implemented and evaluated an enhanced ‘Ask
Me 3™’ educational campaign to improve communication
between the health care team, patients, and their families in
out-patient Pediatric Pulmonary clinics, including the Sleep
Clinic.
F9
Using Patient- and Family-Centered Care Strategies
to Improve Care and Service to Patients Who Die and
Their Families
Elizabeth Ata, BS, Decedent Affairs and Palliative Care
Coordinator; Alice Gunderson, BA, BS, Patient-Family Advisor;
Mary Lynne Knighten, RN, MSN, PN, Senior Director, Patient
Experience and Care Delivery; St. Francis Medical Center,
Lynwood, CA
Traditional clinician viewpoints regarding patients who have
died is that of a “body.” The patient was—and still is—a
person to their family. St. Francis Medical Center uses
patient- and family-centered care concepts to maintain the
dignity of every person after death.
The End of Life Champion Program
Paul Boucher, MD, BSc, Co-Chair, Patient and Family Centered
Care Committee, Department of Critical Care/CVICU Medical
Director; Jana Wyber, Family Advisor, Department of Critical
Care; Foothills Hospital, Alberta Health Services, Calgary,
Alberta, Canada
This is a descriptive account of the experience with an end
of life quality improvement program in the regional adult,
intensive care units of the Calgary Health Region of Canada.
conference sessions
F10
G3
Implementing and Evaluating the Guide to Patient and
Family Engagement: Improving Hospital Quality and
Safety by Engaging Patients and Family Members in
Their Care
The Michigan Difference: Implementing Patient- and
Family-Centered Care at the UM Cardiovascular Center
Kristin Carman, PhD, Co-Director, Health Policy and Research;
American Institutes for Research, Washington, DC; Pamela
Dardess, MPH, Senior Researcher; American Institutes for
Research; Chapel Hill, NC
This presentation will describe the Guide to Patient and
Family Engagement in Hospital Quality and Safety,
preliminary lessons learned from implementing the Guide
in three hospital sites, and metrics for evaluating Guide
implementation and assessing hospital-level changes.
3:45 – 4:00 pm
BREAK
4:00 – 5:15 pm
Concurrent Sessions (G1-G10)
G1
Can Academic Medical Centers Improve Service and
HCAHPS Scores? Learn From the Best How It’s Done!
Findings of a Vidant Health study comparing the HCAHPS
scores of 96 academic medical centers to Value-Based
Purchasing benchmarks: revenue impact, best practices,
and leadership qualities. An advisor from top-performing
Vidant Medical Center will share approaches for
successfully implementing patient- and family-centered
concepts and enhancing satisfaction.
G2
Strength in Numbers: Enhancing the Family Advisor
Program at Penn State Hershey Children’s Hospital
Jessica Capitani, BA, Family Advisor; Deborah Fuhrer, BA,
MS, Family-Centered Care Coordinator; Penn State Hershey
Children’s Hospital, Hershey, PA
The involvement of patients and families helps to improve
patient- and family-centered care in daily practices and
hospital initiatives. This session will discuss ways family
advisors are currently participating in staff education,
hospital committees, task forces, and patient- and familycentered initiatives.
Engaging Diverse Communities in Patient- and FamilyCentered Care: The Development of a Latino Family
Advisory Board
Gabriela Flores, BA, MSM, Director, Office of Equity and
Diversity; Children’s Mercy Hospitals and Clinics, Kansas
City, MO
Hear about the array of strategies put in place to
implement a Patient- and Family-Centered Care Program
at a cardiovascular center that provides services to adult
patients and their families.
G4
Positioning the Family and Patient at the Center: A
Guide to Family and Patient Partnership in the Medical
Home
Michellle Esquivel, MPH, Director, Division of Children
with Special Needs and National Center for Medical Home
Implementation; American Academy of Pediatrics, Elk
Grove Village, IL; Rebecca Malouin, PhD, MPH, Assistant
Professor and Director, Department of Pediatrics and Human
Development, College of Human Medicine, Michigan State
University; East Lansing, MI; Nora Wells, MS, Director of
Programs, Family Voices, Inc.; Lexington, MA
An overview of the monograph will be presented including:
the historical development and evidence base for patientand family-centered care, case studies of patient- and
family-centered care in medical homes, and descriptions
of patient- and family-centered strategies and tools utilized
within medical homes.
G5
Caregiver Presence in Interventional Radiology
Procedures
t u e s day
Kim Blanton, Patient-Family Advisor; Vidant Health, Greenville,
NC; Kathy Vermoch, MPH, Project Manager, Quality
Operations; University HealthSystems Consortium (UHC);
Chicago, IL
Bonnie Davis, Advisor, Co-Vice Chair, Patient Family Advisory
Committee; Linda Larin, MBA, FACCA, FACHE, Chief
Administrative Officer; Elizabeth Nolan, MS, RN, Director, CVC
Patient Education & Mardigian Wellness Resource Center,
University of Michigan Cardiovascular Center; Ann Arbor, MI
Melanie Hoynoski, BS, CCLS, Child Life Specialist; Amy
Kratchman, BA, Family Consultant; Kelly Mignogna, BA, CCLS,
Child Life Specialist; The Children’s Hospital of Philadelphia,
Philadelphia, PA
Implementation of a program assessing family readiness to
accompany pediatric patients into Interventional Radiology
procedures, including routine feeding tube changes, NasoJujenal tube placements, and induction. Program consists
of procedural and educational support.
Advancing Patient- and Family-Centered Care in the
Pediatric Perioperative Setting
LaTonya Barton, MBA, Parent Advisor; Carolyn A. Benigno,
MSN, RN, CPN, Clinical Nurse; Michele M. Grady, BA,
JD, Perioperative Surgery Concierge Coordinator; Mary
Richardson, BSN, RN, Parent Advisor; Children’s National
Medical Center, Washington, DC
Perioperative staff and parent advisors will share
innovative practices and projects that are responsive to
the specific needs of patients and families in a pediatric
perioperative setting.
The purpose of this session will be to describe the
development, implementation, and engagement of a Latino
Family Advisory Board at an urban pediatric hospital setting
in the Midwest.
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conference sessions
G6
G8
Advancing the Practice of Patient- and FamilyCentered Care: Yale-New Haven Hospital UnitBased Training
SMART: The Patient- and Family-Centered Universal
Discharge Protocol Jeannette Hodge, BA, Director, Patient Relations, Volunteer
and Guest Services; Cheryl Hoey, RN, BSN, MSN, MBA,
Director, Patient Services for Pediatrics; Susan Kamm, BA,
Manager, Patient- and Family-Centered Services; Yollanda
London, MPH, Manager Strategic Planning/New Business
Development; Mary Ellen Pappas, BA, Co-Chair, Patient and
Family Advisory Council; Pat Sclafani, BS, MS, Co-Chair,
Patient and Family Advisory Council, Yale-New Haven Hospital,
New Haven, CT
The Patient and Family Centered Committee, designed a
90-minute multimedia presentation to introduce staff of a large
academic medical center to the principles of patient- and
family-centered care and challenge them to incorporate these
principles into their daily practice at Yale New Haven Hospital.
G7
T u e s day
A Model Partnership Between Ambulatory Clinics
and Family Centered Care: The Use of High-Fidelity
Simulation to Improve Parent/Provider Communication
in the Clinic Setting
Michele Ashland, BA, Parent Lead; Kathleen Davidson, RN,
BSN, MBA, Administrative Director, Obstetric/Pediatric Faculty
Practice Organization, Ambulatory Care Center Operations;
Karen Wayman, PhD, Packard Children’s Endowed Director
of Family Centered Care; Lucile Packard Children’s Hospital,
Palo Alto, CA
Results will be presented from two pilot studies conducted
at Packard Children’s using a cadre of well trained “parent
actors” from the Department of Family Centered Care in a
high-fidelity simulation training to improve parent/provider
communication in the clinic setting.
Bringing the Patient’s Goals to the Forefront of Their
Visit While Collaboratively Coaching: Success in
Outpatient Neuroscience
Christa Butler, RN, BSN, MSM, Nurse Practice Site
Coordinator; Rebecca Herzberg, BBA, Patient Advisor;
Georgia Health Sciences University Medical Center; Augusta,
GA
The purpose of our initiative is to provide a patient- and
family–centered healing environment for those with
neurological and neurosurgical illnesses. This work focuses
on bringing the patient’s goals to the forefront during the
visit while collaboratively coaching through the process.
30
Kristina Andersen, RN, BSN, Project Coordinator; Sherry
Perkins, PhD, RN, Chief Operating Officer/Chief Nursing
Officer; Susan Walden, Patient Advisor; Anne Arundel Medical
Center, Annapolis, MD
It is time for a patient- and family-centered
universal discharge protocol. This session
discusses SMART, a multidisciplinary and
patient and family process that begins during
hospitalization, ensures a “hard stop” review of the SMART
tool, and post-discharge collaboration.
G9
Successful Communication with Patients and Families
Theresa Drum, Family Advisory Council Member; Ann
Maghran, BSW, Family Centered Care Coordinator; Tim
Sember, Family Advisory Council Member; Valerie Sember,
Family Advisory Council Member/Co-Chair; Women and
Children’s Hospital of Buffalo, Buffalo, NY
Family Advisory Council members at Women and Children’s
Hospital of Buffalo partnered with the nursing educators to
collaborate on education days for all the hospital nurses.
The goal was to increase staff awareness about the patient
and family perspective of care.
G10
Calgary’s New South Health Campus: How Patient and
Citizen Partnerships are Helping Build ‘The Future of
Health Care’
Joanne Ganton, BComm, Manager, Patient- and FamilyCentered Care; Gina Grace, BSW, Citizen Advisory Team
Member; Shelley Koch, BA, Site Director; Michelle Stasiuk,
Co-Chair, Citizen Advisory Team; Gloria Wilkinson, Volunteer,
Citizen Advisory Team Member; Alberta Health Services, South
Health Campus, Calgary, Alberta, Canada
South Health Campus is transforming the care experience
for patients, families, and health care providers. The Citizen
Advisory Team has partnered with architects and clinicians
to plan Calgary’s new health campus—together shaping the
‘Future of Health Care.’
8:00 – 9:15 am
Concurrent Sessions (H1-H11)
H1
day at-a-glance
Designing an Integrated Values-Based Professional
Practice Model and Patient- and Family-Centered Care
Delivery Model: From Strategic Plan to Accountable
Results!
7:00 am – 8:00 am Continental Breakfast (Informal
Alice Gunderson, Patient-Family Advisor; Mary Lynne Knighten,
RN, MSN, PN, NEA-BC, Senior Director, Patient Experience
and Care Delivery; Beverly Quaye, EdD, RN, NEA-BC, FACHE,
Chief Nursing Officer, Vice President of Patient Care Services;
St. Francis Medical Center, Lynwood, CA
9:15 am – 9:30 am Break
Leaders may struggle with implementing a transformative
process to achieve the full value of patient- and familycentered care. Learn how to integrate a values-based
professional practice model with a patient- and familycentered care delivery model to transform the patient
experience.
H2
3:15 pm – 3:30 pm Break
Erika Laszlo, Advisor, Patient Family Centered Care Program;
University of Michigan Cardiovascular Center; Heather
Wagenschutz, MA, Program Administrator; Office of Medical
and Student Education/Family Centered Experience; University
of Michigan Medical School, Ann Arbor, MI
This interactive presentation will highlight a required medical
school course where families dealing with chronic illness
serve as actively engaged educators to help medical
students see the patient as a whole person, beyond just the
diagnosis of their disease.
H3
Family Experience Tracers: Parents on Staff Gathering
Real-Time Feedback Through the Eyes of the Patient
and Family
Sheryl Chadwick, BS, Family Centered Care Coordinator;
DeeJo Miller, BA, Family Centered Care Coordinator;
Children’s Mercy Hospitals and Clinics, Kansas City, MO
Family experience tracers are an innovative tool used to
collect real-time information from patients and families
during their hospital stay or clinic visit. Learn how family
leaders interview patients and families and accumulate data
to make system improvements.
(H1 – H11)
(I1 – I11)
11:00 am – 11:15 am Break
(J1 – J11)
12:30 pm – 2:00 pm Lunch Break (on your own)
(K1 – K10)
3:30 pm – 4:45 pm Closing Plenary
H4
The Role of System and Advisor Leadership in
Advancing Patient- and Family-Centered Care Across
Multiple Environments of Care
Kim Blanton, Patient-Family Advisor; Sue Collier, RN, Vice
President, Office of Patient-Family Experience; Vidant Health,
Greenville, NC
w e d n e s day
Win-Win: Patient Volunteers Serving as Authentic,
Active Educators in Family-Centered Care to Medical
Students
Networking Breakfasts)
This presentation will use the five key elements of the
Institute for Healthcare Improvement Framework for
Leadership for Improvement to describe how system and
advisor leaders can advance patient- and family-centered
practices across a multi-hospital health care system and
multiple environments of care.
H5
Engaging Patients in Primary Care Redesign:
Strategies for Success, Lessons Learned, and
Treasures Unearthed
Stephanie Berkson, MPA, Director, Quality and Safety
Improvement, University of Wisconsin Medical Foundation;
Martha Gaines, JD, LLM, Director, Center for Patient
Partnerships, Clinical Professor of Law, Principal, E2T;
University of Wisconsin Health System, Madison, WI
This presentation will share unique, instructional materials
developed by patient leaders, and rich lessons learned from
this collaboration between University of Wisconsin Health
System and Engage to Transform (E2T) at the Center for
Patient Partnerships to engage patients in organizational
redesign efforts.
31
H6
H9
Patient and Family Interviews: A Powerful Quality
and Safety Improvement Opportunity at DartmouthHitchcock Medical Center
The Relationship Between Participation in FamilyCentered Care Training and Communicative
Adaptability Among Medical Students: Changing
Hearts, Changing Minds
w e d n e s day
Nancy Bassett, BA, Patient Representative, Voices Volunteer;
Licia Berry-Berard, MSW, LICSW, Manager, Patient Family
Centered Care; Meg Seely, MA, Chair, Family Advisory Board,
Patient Representative, Voices Volunteer; Dartmouth-Hitchcock
Medical Center, Lebanon, NH
Volunteers interview patients and families
about their inpatient care experience.
Feedback is shared real time with nursing
leadership. Stories, captured in a database, allow theme
categorizing and trending. These themes help guide our
quality and safety improvement plan for the organization.
This presentation will share the results of a parametric
study of medical students at the University of New Mexico’s
School of Medicine who have participated in one of two
mandatory patient- and family-centered training programs
to determine if improvements are achieved in students’
communication skills.
H7
H10
Patient Education: The Foundation for Active Patient
and Family Engagement — How Vanderbilt Built the
Case for a Robust Patient/Family Education Redesign
Initiative
Overheard: What We Say, What We Mean, What
Families Hear
Marilyn Dubree, MSN, RN, Executive Chief Nursing Officer;
Lynn Ferguson, BS, Member, Patient and Family Advisory
Council; Terrell Smith, MSN, RN, Director, Patient and
Family Centered Care; Vanderbilt University Medical Center,
Nashville, TN
This facilitated, interactive session will examine real-life
words said to families in NICUs throughout the nation.
Together, we will examine the intent versus impact of what
was said and identify language choices that would have
been more helpful and sensitive.
Patients and families need clear, understandable information
to take an active role in their health care. This presentation
describes an analysis of patient and family education at an
academic medical center — how gaps and inconsistencies
were identified and the process was redesigned.
H8
Changing Lives: The Patient-Provider Relationship in
Centering Group Care
Debra Keith, CNM, MS, Midwifery Director; Providence
Hospital, Center for Life, Washington, DC; Sharon Rising, CNM,
MSN, FACNM, Chief Executive Officer/President; Centering
Healthcare Institute, Silver Spring, MD
Centering is a model of care that has transformed both the
process and outcomes of care for providers, patients, and
their families. This presentation will focus on the patient and
provider stories related to their participation in Centering.
32
Lisa Rossignol, BUS, Graduate Student, Health
Communication; Department of Communication, University
of New Mexico; Jan Winslow, Director of Family Leadership,
Parents Reaching Out; Albuquerque, NM
Liza Cooper, LMSW, Director, Family-Centered Care and Family
Engagement; March of Dimes Foundation, White Plains, NY
H11
Follow the Patient’s Footsteps – A New Leadership Tool
Elisabeth Broegger Jensen, RN, Project Manager; Tina Lynge
Lyngbye, RN Consultant; Danish Society for Patient Safety,
Hvidovre, Copenhagen, Denmark
The Danish Society for Patient Safety has developed a
new tool which is aiming at engaging hospital CEOs in
patient-centred care and making their commitment and
engagement visible. The focus of this session is on patient
involvement and patient safety.
9:15 – 9:30 am
BREAK
9:30 – 11:00 am
I3
Concurrent Sessions (I1-I11)
The Evolution of Embedding Youth Facilitators into
Health Care Teams
I1
C.J. Curran, TRS, BHA, Manager, Therapeutic Recreation &
Life Skills; Dolly Menna-Dack, Patient Leader, Youth Facilitator;
Holland Bloorview Kids Rehabilitation Hospital, Toronto,
Ontario, Canada
Transforming Health Care Together - Stories from
Australia
Susan Biggar, BA, MA, Board Member; Catherine Crock,
MD; Bachelor of Medicine, Bachelor of Surgery, Executive
Director; Australian Institute for Patient & Family Centred Care,
Melbourne, Victoria, Australia
Partnership, a safe and supportive health care culture, and
a healing environment-—three key elements for patientand family-centred care. This session describes Australian
examples in the context of a new national organization
aiming to transform health care in Australia.
Achieving Patient- and Family-Centred Care Through
Consumer Participation
Elizabeth Harnett, Head of the Clinical Governance Unit; The
Children’s Hospital at Westmead; Sydney, New South Wales,
Australia
Creation of an Adolescent/Young Adult Oncology
Patient Work Group in a Pediatric Hospital Setting
Wade Brockway, Adolescent/Young Adult (AYA) Cancer
Survivor; Lisa Logan, RN, MSN, CPNP, CPON, Adolescent &
Young Adult Nurse Coordinator; Cook Children’s Hematology &
Oncology Center, Fort Worth, TX
An Adolescent/Young Adult (AYA) Patient Council was
formed to help improve the care of AYAs treated at Cook
Children’s (primarily a children’s hospital/treatment center)
and ensure that the real priorities of AYAs were being
addressed.
I4
I2
Family Mentoring TLCs: Talking, Listening, Caring,
Sharing
Patient and Family Engagement in Health Care Delivery
Through the Development of Patient and Family
Advisory Councils Across Catholic Health Initiatives
June Sharkey, RN, Shift Nurse Manager; Maria Walker, LCSW,
Social Worker; Cathy Wright, MEd, Patient Advisor; Emory
University Hospital, Atlanta, GA
Camille Haycok, MS, RN, Vice President, Evidence Based
Practice; Catholic Health Initiatives, Englewood, CO; Earl
Kinnear, RNC, FNP BC, GNP, PFAC Co-Leader; Catholic Health
Initiatives, Albany, MN; Carol Wahl, RN, NEA-C, FACHE, Vice
President, Patient Care Services; Good Samaritan Hospital,
Kearney, NE
Our interdisciplinary team can assist in developing a Family
Mentoring program. Former patients and family members
meet weekly with current family members to listen, share,
and educate. We will present our journey with mentoring
training and recruitment.
This presentation describes the journey of a health system
of over 70 hospitals across 19 states in the development and
adoption of outcomes-oriented Patient and Family Advisory
Councils. Examples from the comprehensive toolkit,
outcomes, and lessons learned will be shared.
Developing Trust: Forming a Volunteer Patient and
Family Group to Advise Canada’s Largest Health Care
Provider
Travis Enright, Reverend Canon, Patient and Family Advisory
Group Member; Linda Howitt-Taylor, Patient and Family
Advisory Group Member; Susan Mumme, BSc, MHS, Senior
Vice President, Patient and Family Advisory Group Co-Chair;
Deb Runnalls, Patient and Family Advisory Group Member;
Alberta Health Services, Alberta, Canada
w e d n e s day
The Children’s Hospital at Westmead’s Consumer
Participation & Partnerships Program enables staff and
consumers to work together at all levels of the consumer
participation spectrum, which starts at ‘inform’ and ends
with ‘empowerment.’
This presentation will outline the history and implementation
of the Youth Facilitator role. Highlights will include the
process of embedding the youth facilitator into a health care
team and the challenges that were overcome over the past
five years.
A New Collaborative Strategy: Including the Family as
Partners in Care
Patricia Brown, DNP, APN-BC, CNS, CCRN, Practice Manager,
Neurosciences and Orthopaedics; Karen Burnett, MBA, MS,
Member, Patient and Family Advisory Council and Consumer
Advocate, Volunteer Services; Nita Kulkarni, MD, Hospitalist,
Medical Director 16 East Medicine Unit; Northwestern
Memorial Hospital, Chicago, IL
At Northwestern Memorial Hospital, patient and family
engagement was fostered through enhancements of the
existing care model. Interventions focused on establishing
partnerships with patients, families, and the health care
team to include improved communication, and increased
family involvement.
Participants will meet and talk with four members of
Alberta’s Patient and Family Advisory Group to Alberta
Health Services, the largest health provider in Canada.
Learn about how vital trust and leadership are in humanizing
our journey at this scale.
33
I5
I7
The Ride of Your Life
The Evolution of a Patient Safety Rounds Program:
Patient Advisors at the Forefront of Implementation and
Ongoing Evaluation
Marnie Dyer, Parent Support Coordinator; Maureen Heald,
Parent Support Coordinator; Rachel Houck, LCSW, Social
Worker; Elizabeth Moll, RN, MSN, CPNP, Developmental
Care Specialist; Vicki Smith, RN, Parent Educator; Children’s
Hospital of the King’s Daughters, Norfolk, VA
This staff teaching tool provides insight into the emotional
rollercoaster NICU families experience while their baby is
hospitalized. Through group discussion, problem solving,
open communication and collaboration, this game will
change a unit’s culture by educating staff on patient- and
family-centered principles.
Engaging Families in the Development and Study of a
Model of Family Integrated Care in the NICU
Karel O’Brien, MD, FRCPC, Staff Neonatologist; Kate Robson,
BA, MEd, ADR Certificate, Veteran Parent; Mount Sinai,
The objective of this study was to develop and pilot a model
of true family integrated care, through parent engagement in
a multidisciplinary team.
w e d n e s day
I6
Case Study: The Evolution of an Integrated Health Care
System’s Patient- and Family-Centered Care Journey
Anita Bilden, MAOL, Patient- and Family-Centered Care
Coordinator; Dean Buresh, Patient Partner; Park Nicollet Health
Services, St. Louis Park, MN
An in-depth case study of how one integrated health care
system incorporated patient- and family-centered principles
and best practices throughout the organization and the
evolution of their efforts.
Establishing a Patient Advisory Committee to Support
the Patient-Centered Medical Home
Kari Loken, PCMH Project Coordinator; Patricia Schmidlapp;
Elaine Skoch, RN, MN, EMBA, NEA, BC, Director of Systems
Transformation; HealthTeamWorks, Lakewood, CO
HealthTeamWorks established the Patient Advisory
Committee to inform and guide changes affecting patients in
primary care practices that are becoming patient-centered
medical homes. The committee, comprised of patients and
representatives from patient advocacy organizations, helps
to develop patient-related materials and generates feedback
for providers.
34
Aileen Killen, PhD, RN, Director of Patient Safety; Marina
Lenderman, LCSW, Coordinator of the Patient and Family
Advisory Program; Robin Moulder, RN, MBA, CPHQ, Patient
Advisor; Alex Zimmer, JD, BA, Patient Advisor; Memorial SloanKettering Cancer Center, New York, NY
Patient advisors survey patients regarding patient safety.
Working with clinical staff, patient advisors develop
the questions and a training regime, share results with
clinicians, and incorporate the information gained in a
replicable, self-improving program.
Family-Centered Care Grand Rounds and Patient
Safety: Partnering to Prevent Harm
Kathy Conaboy, BA, Family Consultant; Annique Hogan, MD,
Attending Physician, General Pediatrics; Amy Kratchman, BA,
Family Consultant; The Children’s Hospital of Philadelphia,
Philadelphia, PA
At The Children’s Hospital of Philadelphia, an educational
series, Family-Centered Care Grand Rounds, was created
where families and staff co-present to the organization to
build awareness and acceptance of the value and benefits
of Family-Centered Care Bedside Rounds and its strong link
to improved patient safety.
I8
Showcasing Mind-Body Programs and Practices Within
a Patient- and Family-Centered Framework: The Lived
Experience
Jeanne Abatemarco, MS, RN, CNS, QTTP, Clinical Nurse
Coordinator; Diane Rosenstein, MSW, LCSW, Director;
Department of Integrative Health Programs, NYU Langone
Medical Center, New York, NY; Claudia S. Martin, MSSW, LISW,
Clinical Director; Vicki H. Thomas, PhD, Clinical Psychologist/
Chief; Warrior Resilience Center, William Beaumont Army
Medical Center, El Paso, TX; Anne Doherty-Gilman, MPH,
Associate Director; Leonard Zakim Center for Integrative
Therapies, Dana-Farber Cancer Institute, Boston, MA
This session will highlight
mind-body programs that have
been successfully delivered and
evaluated in patient- and family-centered environments
across the country. Presenters will share unique challenges
they faced, and barriers to overcoming them.
I9
11:15 am – 12:30 pm
Building a Patient Navigation Program within General
Pediatrics, Version 1.0: Start-Up Lessons from the Field
Concurrent Sessions (J1-J11)
Cara Biddle, MD, MPH, Medical Director and Faculty,
Children’s Health Center; TjaMeika Davenport, BM, Parent
Navigator; Christine Deeley-Wood, BA, Parent Navigator;
Michelle Jiggetts, MD, MS, MBA, Administrator, Complex
Care Program and Parent Navigator Program; Yan Orellana,
BA, Parent Navigator/Padre Guia; Lisa Stewart, MA, Parent
Navigator; Children’s National Medical Center, Washington, DC
J1
This presentation is a how-to guide for creating family/
patient navigation programs within primary care pediatric
settings. It draws from a hospital-based medical home
initiative for children with special needs yet has applications
for community practices and general patient populations.
Navigating a Parent’s Journey Through Pediatric
Critical Care
Julie Barnes, BSN, RN, Family Centered Care Manager; Karen
Hawks Sanders, Pediatric Critical Care Navigator; Brenner
Children’s Hospital, Winston-Salem, NC
Pediatric Critical Care Navigators serve as a gateway to the
medical center and critical care experience. The program
blends a parent support model with a concierge model.
This dedicated support ensures basic needs are met and
encourages family involvement.
Strategies for Teaching Shared Decision Making to
Mental Health Professionals
Gina Duncan, MD, Assistant Professor; Gareth Fenley, MSW,
CPS, Certified Peer Specialist; Alex Mabe, PhD, Professor;
Georgia Health Sciences University, Augusta, GA
The key to the recovery model of mental health care is a
collaborative process of decision making involving the
patient/family and mental health provider. This presentation
provides a practical road map toward teaching shared
decision making to mental health providers.
I11
Translating Quantitative and Qualitative Research
into Patient- and Family-Centered Critical Care
Improvement
Michelle Collis, Vice President, Patient- and Family-Centered
Care; Cori Cohen Grant, MS, MBA, Director, Market Research;
Christine Montgomery, Chair, Methodist Le Bonheur
Germantown Hospital Family Partners Council; Methodist Le
Bonheur Healthcare, Memphis, TN
In collaboration with family partners and others from
throughout the Methodist Le Bonheur Healthcare system, a
roadmap was created to transition all critical care units from
traditional environments to ones in which family presence
and partnership are encouraged and valued.
Kay Brandon, Patient/Family Advisor; Ed Piper, FACHE, Chief
Executive Officer; Erin Tallman, OTR/L, MHA, Vice President,
Director, Patient and Family Advocacy; Onslow Memorial
Hospital, Jacksonville, NC
This presentation will share information to assist other
hospitals in developing and implementing an organizational
infrastructure for patient- and family-centered care through
committed leadership and a partnership with patients and
families.
J2
A Plan to Jump Start Patient- and Family-Centered Care
at Penn State Hershey Children’s Hospital
Deborah Fuhrer, BA, MS, Family-Centered Care Coordinator;
Linda Gilgore, Family Advisor; Penn State Hershey Children’s
Hospital; Hershey, PA
This session will present findings from a survey assessment
tool conducted to develop a five-year strategic plan focusing
on improving patient- and family-centered programs,
education, and initiatives. Presenters will share sample
strategic plans, timelines, measurements, and achievable
objectives.
Just Do It! Beginning a Patient- and Family-Centered
Committee in a Peri-Operative Area
Scott Newport, Tradesman, Parent Advisor; Julie Piazza,
MS, CCLS, Child Life Specialist/Training Coordinator; Susan
Zill, RN, Level E; C. S. Mott Children’s Hospital, University of
Michigan Health System, Ann Arbor, MI
w e d n e s day
I10
A Community Hospital’s Strategy in Developing and
Implementing the Organizational Infrastructure for
Patient- and Family- Centered Care
The overarching initiative was to advance patient- and
family-centered care principles in the peri-operative areas
of a large children’s hospital within a university health care
system by creating a patient- and family-centered care
multidisciplinary committee with family partnerships.
J3
Nurse Bedside Report: An Evidence-Based Practice
Project to Evaluate Patient Safety and Patient/Nurse
Satisfaction Through Nurse and Family Collaboration
Katherine Galgani, BSN, RN, Staff Nurse; Linda Gauvain, MSW,
BSSW, BSN, RN, Manager, General Medicine III; Kathy Park,
BSEd, Lead Parent; St. Louis Children’s Hospital, St. Louis, MO
Implementation of change of shift report performed at the
bedside can improve parent, patient, and nurse satisfaction
as well as identify potential safety issues at the time of
transition in care.
11:00 – 11:15 am
BREAK
35
Family Care Partner – PFCC In Action!
Sherry Smith, Patient and Family Satisfaction Coordinator;
Maria Theron, RN, MSN, CCRN, Executive Director of
Nursing, Critical Care Division & Emergency Department;
Memorial Health University Medical Center, Savannah, GA
Our Critical Care team used an innovative approach to
identify the needs of patients and families and used this
opportunity as a way to expose team members who were
not typically involved with families to make it happen.
Dianne Tapp, RN, PhD, Dean and Professor/Faculty of Nursing;
University of Calgary, Calgary, Alberta, Canada
J4
The Family Resource Center: Partnering with Families
to Provide Resources and Services
J8
The Family Resource Center at Nationwide Children’s
Hospital is a welcome support for families. Participants
attending this session will be able to identify ways to
support families and patients through education initiatives,
supportive programs, and services.
J5
w e d n e s day
Curriculum Reform for Collaborative Practice with
Families: Transforming Nursing Education for FamilyFocused Care
Implementation of a baccalaureate nursing curriculum
model that incorporates a full semester of integrated
courses, focused on families in transition across the lifespan
and that builds competencies in collaborative patient- and
family-centered care, will be presented.
Stacy Isenbarg, Parent Advisor/Hospital Experience Committee
Chair; Jennifer Patterson, Family Liaison; Paul Seese, RN,
MSN, Coordinator, Family Resource Center; Nationwide
Children’s Hospital, Columbus, OH
Building Buy-In for the Value of Peer Support
Programs: Lessons Learned from a CommunityBased Program
Gayle Parks Krupa, RN, BSCN, Clinic Coordinator, Stollery
Children’s Hospital Down Syndrome Medical Clinic, Alberta
Health Services; Sue Robins, BA, Co-Founder, Visiting Parents
Program, Edmonton Down Syndrome Society; Edmonton,
Alberta, Canada
Everybody agrees that peer support is important to families,
but these programs can be hard sells in the hospital.
Using examples from a community-based program, this
presentation will give concrete examples of the value of peer
support in any setting.
J6
Achieving a Safe Landing: One Academic Medical
Center’s Commitment to Improve Patient Transitions
Through Resident Engagement with Patients
and Families
Elizabeth Shaw, BS, Family Advisor; Mauri Sullivan, MSN, RN,
NEA-BC, Clinical Director, Medical Nursing Hospital; University
of Pennsylvania, Philadelphia, PA
Creating and sustaining a culture of patient- and familycentered care in an adult academic medical center requires
active leadership at all levels. A nurse leader and family
advisor utilize forums with medical residents to connect
organizational goals with patient-centered care.
36
J7
Partnering with Patient/Family Advisors in Simulated
Learning Experiences
Marc Bertrand, MD, Associate Dean, Graduate Medical
Education, Designated Institutional Official, Associate
Professor of Anethesiology; Karen Blum, MA, Patient/Family
Advisor; Jonathan Huntington, MD, PhD, Physician; Ellen
Lones, PhD, RN, CNOR, Instructional Design/Curriculum
Development Specialist; Dartmouth-Hitchcock Medical Center,
Lebanon, NH
Dartmouth-Hitchcock Medical Center is
actively partnering with Patient/Family
Advisors as subject-matter experts in
simulated learning experiences. These important professional
development opportunities are being designed to facilitate
the cultural change necessary to fully integrate patient- and
family-centered care into every patient-care experience.
Enhancing Pediatric Simulations with Parents as Actors
Karen Crow, MSEd, Coordinator of Family-Centered Care
Initiatives; Mary Wolf, Lead Parent, Parents as Actors Program;
St. Louis Children’s Hospital, St. Louis, MO
Family advisors at St. Louis Children’s Hospital have been
embedded into clinical simulation events to add more
realism to the educational experience. Overwhelming
support for additional family participation in simulation has
been expressed by staff participants.
J9
Implementing Clinical Best Practice for
Breastfeeding: Caught Between Best Practice
and Patient-Centered Care?
Deborah A. DeMarais, MD, MS, FAAP, Vice President, Service
Line Physician Executive; Lora Harding Dundek, BA, MPH,
Manager, Birth and Family Education and Family Support
Services; Fairview Health Services, Minneapolis, MN
A multi-hospital system developed a vision to support
breastfeeding infants prenatally, intrapartum, and
postpartum. Unanticipated tensions arose as staff/providers
struggled to balance clinical best practice, the needs of
mother and baby, patient- and family-centered care, and
family expectations.
J10
Don’t Label Me “Difficult”: Strategies to Strengthen
Partnerships within a Pediatric Patient- and FamilyCentered Care Environment
Darlene Barkman, MA, Family Consultant; Rachel Biblow
Leone, MSW, Director, Family Relations; Elizabeth Steinmiller,
MSN, PMHCNS-BC, Clinical Nurse Specialist in Mental Health;
When there is conflict between patients/families and
providers, the care experience can shift between being
team-focused or family-directed. This presentation will share
strategies for improved partnerships to bring equilibrium and
ultimately, influence safe and successful care outcomes.
Family as Faculty: Effectively Using Family Leaders
to Implement Patient- and Family-Centered Care
Education for Physicians, Nurses, and Ancillary Staff
Sheryl Chadwick, BS, Family Centered Care Coordinator;
DeeJo Miller, BA, Family Centered Care Coordinator;
Children’s Mercy Hospitals and Clinics, Kansas City, MO
As recipients of care, families provide a unique perspective
of the health care experience. Learn how Children’s Mercy
has successfully partnered with paid and volunteer family
leaders to improve the education for residents, nurses, and
ancillary staff.
Determining Metrics for Family-Centered Care
Programs: Three Tiers of Analysis or How to Figure Out
What to Measure, How to Measure, and How to Report
Findings
Nicole Kangas, PhD, Parent Lead, Family-Centered Care
Metrics Team; Karen Wayman, PhD, Packard Children’s
Endowed Director of Family Centered Care; Palo Alto, CA
This session will describe a framework for determining
metrics for family-centered care initiatives in health care
settings. This framework utilizes a key question approach
that assists both researchers and non-researchers
determine “right-fit” metrics for family-centered health care
programs.
12:30 – 2:00 pm
Lunch on your Own
Concurrent Sessions (K1-K10)
K1
Promoting Patient- and Family-Centered Care from
Mid-Level Management
Lisa Morrise, MA, Coordinator, Patient and Family Centered
Care; Tina Persels, Family Member of Primary Children’s
Governing Board; Katy Jo Stevens, MSW, LCSW, Administrative
Director, Family Support Services; Primary Children’s Medical
Center, Salt Lake City, UT
Ideally, top administration champions patient- and
family-centered care. Frequently, mid-level management
implements patient- and family-centered care. This
presentation looks at how Primary Children’s Medical
Center successfully increased senior administrative leaders’
commitment to patient- and family-centered care and
the level of patient and family involvement under middle
management leadership.
K2
Expanding and Advancing the Family Advisory Council
Through an Innovative Structure and Network of
Multiple Specialty Councils
Tamela Grass, Family-Centered Care Program Coordinator;
Wendi Tipps, Parent Advisor, Family Advisory Council (FAC)
Member, Neuro FAC Chair/Family-Centered Care Assistant
Volunteer/Parent Mentor; Cook Children’s Medical Center, Fort
Worth, TX
Expanding the efficiency and advancing the collaboration
of the Family Advisory Council concept by developing
a network of integrated specialty councils will be
discussed in this presentation. Learn how to develop
an innovative infrastructure for reporting, making
formal recommendations, and sharing of ideas to take
collaboration to the next level.
w e d n e s day
J11
2:00 – 3:15 pm
Get Ready, Get Set, Go: Building an Infrastructure that
Supports and Facilitates Parent Participation on Key
Hospital Quality Committees
Stefan Agamanolis, PhD, Associate Director of the Rebecca D.
Considine Research Institute, Director, Centers for Telehealth
Service Design and Patient Experience Innovation; Georgette
Constantinou, PhD, Administrative Director, Division of
Pediatric Psychiatry and Psychology; Judy Doyle, BS, Patient
Advisor Coordinator; Julianne Klein, BSN, RN, Patient Family
Education Coordinator; Akron Children’s Hospital, Akron, OH
Akron Children’s Hospital uses family-centered care principles
to guide our strategic planning and clinical practices. This
presentation provides insight into our vision, lessons learned,
and the benefits of including family members on key quality
committees throughout the organization.
37
K3
K6
Collaboration to Foster Resiliency in Ill Children
Empowering NICU Families in Infection Control:
Production of a Hand Hygiene DVD
Beth Seyda, Executive Director; Compassionate Passages,
Inc., Chapel Hill, NC
While facing the challenges of their terminal or life-limiting
illness, children can still smile and joke. Learn common
characteristics of resilient children and understand how
these can help foster resiliency when families, health care
teams, schools, and the community collaborate.
K4
Bringing the Invisible into Focus: The View Through
Janis Oakes, RN, Patient Advisor, Institute for Clinical Systems
Improvement Patient Advisory Council; Jan Schuerman, MBA,
Shared Decision Making Program Lead; Institute for Clinical
Systems Improvement, Bloomington, MN
Each episode of care is ripe with opportunities for patient
centeredness. Yet they are often missed. Learn how to
see the cues for and implement patient-centered care
using tools developed by Institute for Clinical Systems
Improvement (ICSI), the Patient Advisory Council, and interprofessional teams.
w e d n e s day
K5
Vidant Medical Center, Greenville, NC
Creating Positive First Impressions to Promote Patientand Family-Centered Care
Dave Galloway, Member, Patient and Family Advisory Council;
Roy Lewis, MSA, BSBA, FABC, Administrator, Patient Access
Services; Leslie Spencer, Program Manager, Office of PatientFamily Experience; Vidant Medical Center, Greenville, NC
First Impressions was created, in partnership with patient
and family advisors, to educate and support front-line
employees in the integration of patient- and family-centered
care core concepts with Vidant Medical Center’s existing
mission and standards of performance.
Strategic Storytelling: Creative Approaches to Driving a
Culture of Patient- and Family-Centered Care
Kathy Dutton, RN, Senior Administrator, Office of Patient and
Family Experience; Dave Galloway, Member, Patient and Family
Advisory Council; Vidant Medical Center, Greenville, NC
Hear the story of Vidant Medical Center’s integration of
storytelling as a compelling strategy to support their mission
and promote a culture of patient- and family-centered care.
Creative and meaningful approaches to sharing stories have
been implemented.
“Excellent! This conference made me
feel the sense of urgency that we need
to make changes in health care.”
38
Lori Chudnofsky, RNC-NIC, NICU Assistant Nurse Manager;
Stephen Zieniewicz, MPH, Executive Director; Jennifer Glick,
Patient/Family Advisor; University of Washington Medical
Center, Seattle, WA
This presentation will highlight use of a collaborative,
creative method to introduce critical content to families
and unit visitors about infection prevention, including
handwashing.
‘Gabby’: How One Family’s Story Helped to Reduce
Catheter Associated Blood Stream Infections (CABSI)
in Newborn Critical Care Centers Across North
Carolina
Tara Bristol, MA, State Director, Program Services; March of
Dimes, Raleigh, NC
Collaborative teams engaged in an initiative to reduce
catheter associated blood stream infections. As part of the
work to partner with families, a parent advisor shared his
experience of losing his daughter to a preventable infection.
Teams responded with practice changes to improve safety
and quality.
K7
Patients and Families as Educators: Model Programs
and Best Practices
Deborah Dokken, MPA, Consultant, Chevy Chase, MD; Sweety
Jain, MD, Faculty; Lehigh Valley Health Network, Allentown,
PA; Pamela Mann, MSSA, Associate Director of Programs; The
Schwartz Center for Compassionate Healthcare, Boston, MA
Participants in this session will hear details of
two successful programs that utilize patients
or their family members as educators of
health care providers, and will learn best practices for
implementing similar programs.
K8
The Evolution of Partnership: A Patient- and FamilyCentered Journey in Pediatric Rehabilitation
Heather Evans, Co-Chair, Family Advisory Committee; Laura
Williams, MSW, RSW, Manager, Family Resource Centre and
Client- and Family-Centred Care; Holland Bloorview Kids
Rehabilitation Hospital, Toronto, Ontario, Canada
A parent and staff team from Holland Bloorview Kids
Rehabilitation Hospital will lead a candid discussion
about the history of family engagement, the development
of the Family Leadership Program, the challenges for
staff readiness along with strategies for sustainable, longterm planning.
K9
Our Patient and Family Advisors and the Agency of
Healthcare for Research and Quality Selected Bedside
Shift Report Bundle as their Standard
Michelle Gray, RN, MN, CCRN, NEA-BC, Unit Director CCU;
Carolyn Hill, MSN, RN-BC, Unit Director 5G Medical Unit; Joe
Persichetti, Patient/Family Advisor; Vicky Persichetti, Patient/
Family Advisor; Emory Healthcare at Emory University Hospital,
Atlanta, GA
Our standard process for Bedside Shift Report Bundle
exemplifies our dedication to patient- and family-centered
care. Development, implementation, and evaluation, in
coordination with patient and family advisors, is crucial to
this process. Assuring nursing engagement and compliance
and increasing patient and family satisfaction are positive
outcomes from the Bedside Shift Report Bundle.
K10
Creating Paid Positions for Patient and Family Leaders:
Salary Survey Results
Julie Moretz, BS, Family Leader and Director, Special Projects;
Institute for Patient- and Family-Centered Care, Augusta, GA
Health care systems are increasingly recognizing the
importance of establishing paid positions for patient and
family leaders. Results from this recent survey offer a
snapshot of the trends for actively engaging patient and
family leaders as paid employees and baseline salaries for a
variety of positions that support day-to-day operations.
3:15 – 3:30 pm
BREAK
3:30 – 4:45 pm
Closing Plenary
A Call to Action for Innovation and
Transformational Change
The Families as Partners Program: Supporting
and Integrating Family Involvement with a Paid
Parent Position
Tessa Billman, BS, Family Coordinator; Joy Johnson-Lind,
LICSW, Director of Child and Family Services; Children’s
Hospitals and Clinics of Minnesota, Minneapolis, MN
Join these national
and international
leaders for inspiration
for new ways that
patients, families,
citizens, health care
professionals, and
other leaders can
partner for innovation and transformational change in health
care in the United States, Canada, and other countries
around the world.
w e d n e s day
The Families as Partners Program has been coordinated
by a paid parent position since March 2009. This model
has stimulated program growth and provided additional
opportunities to initiate and advance family involvement.
Debra L. Ness, President, National Partnership for Women &
Families; Washington, DC; Elizabeth Crocker, BA, MEd, Vice
President, Board of Directors, Institute for Patient- and FamilyCentered Care; East Chester, Nova Scotia, Canada
Institute Resources
The Institute for Patient- and
Family-Centered Care offers a wide
selection of resources, including
printed materials such as guidance
publications and self-assessment
tools, videos, DVDs, and CD-ROM
and MP3 Audio CDs. To download
a printable copy of the Institute’s
Resources Guide that includes a list of
current resources and a brief description of each resource,
click on the Resources page at www.ipfcc.org/resources/
index.html. To order online, go
to: www.ipfcc.org/resources
Resources Include:
Pinwheel sponsors receive
a 10% discount on all orders.
Written Guide—Partnering with Patients, Residents, and
Families: A Resource for Leaders of Hospitals, Ambulatory
Care Settings, and Long-Term Care Communities
PARTNERING WITH
PATIENTS AND FAMILIES
TO DESIGN A PATIENTAND FAMILY-CENTERED
HEALTH CARE SYSTEM
Recommendations and
Promising Practices
Bev Johnson, Marie Abraham,
Jim Conway, Laurel Simmons,
Susan Edgman-Levitan,
Pat Sodomka, Juliette Schlucter,
and Dan Ford
With support from the
California HealthCare Foundation
April 2008
Institute for Family-Centered Care
7900 Wisconsin Avenue, Suite 405
Bethesda, MD 20814
www.familycenteredcare.org
In collaboration with
INSTITUTE FOR FAMILY-CENTERED CARE
Institute for Healthcare Improvement
20 University Road, 7th Floor
Cambridge, MA 02138
www.ihi.org
Creating Patient
and Family
Faculty Programs
Barbara L. Blaylock, M.D.
Elizabeth Ahmann, ScD, RN
Beverley H. Johnson
with support from
A. K. Watson Charitable Lead Trust
American Institutes for Research
Child, Adolescent, and Family Branch
Center for Mental Health Services, US DHHS
Eli Lilly and Company
Josiah Macy, Jr. Foundation
The Nathan Cummings Foundation
Guidance Publications and Books: A
variety of practical, fact-filled resources
offering guidance for developing patient and
family advisory councils, creating patient
and family faculty programs, changing the
concept of families as visitors, planning new
health care environments, and other relevant topics.
New!
New Companion Leadership
Resources:
DVD—Partnerships with Patients, Residents,
and Families: Leading the Journey
39
conference posters
POSTER SESSIONS
Tele-visitation—Bringing Patients’ Families to the
Bedside by Video Link
Anne Cryderman, RN, Telemedicine Nurse; Bonnie Nicholas,
RN, CNCC(C), CPTC, Patient- and Family-Centred Care Lead;
Thunder Bay Regional Health Sciences Centre, Thunder Bay,
ON, Canada
c o n f e r e n c e
p o s t e r s
Tele-visitation, virtually transporting a patient’s family to the
bedside, has recently been flagged by Accreditation Canada
as a potential leading practice for patient- and familycentered care. This poster will share the profound impact of
this service on the patient experience.
7:00 am – 8:00 am
10:00 am – 10:30 am Poster presenters available
for questions.
12:45 pm – 2:00 pm Poster presenters available
for questions.
5:00 pm – 6:30 pm
Utilizing the Electronic Medical Record to Facilitate
Family Presence
Sherri Black, Patient Care Advisor; Kena Despain, RN, Clinical
Manager; Gabe Fritz, Patient Care Advisor; University of
Louisville Hospital, Louisville, KY
9:15 am – 9:45 am
In collaboration with our Patient Care Advisory Team, a family
presence policy was developed in which guests, partners in
care, and family are defined. Additions to the EMR allow for
documentation of education, preferences for participation,
collaboration, and information sharing.
Patient- and Family-Centered Care Pathways Provide
Better Outcomes for the Patient and Reduce Length of
Stay
Kimberly Newcomb-Forro, RN, Staff Nurse, Level C; Monica
Waidley, RN; University of Michigan Health System, Ann Arbor, MI
This poster will highlight developing a business case for
patient- and family-centered care by reducing length of stay,
readmission rates, and improving patient outcomes.
Patient-Centered Interventions to Decrease
Readmissions and Promote Effective and Efficient Care
Renee Fay-LeBlanc, MD, Associate Chief Medical Officer;
Debra McGill, RN, Care Transition Nurse; Michael Yunes,
MPH, Quality Program Manager; Maine Medical Partners,
Scarborough, ME
A multidisciplinary team studies the highest utilizers of our
medical center. We collect data through chart reviews, home
visits, physician surveys, and patient interviews. We develop
individualized care plans—increasing patient satisfaction and
quality of life, while decreasing unnecessary readmissions.
Creating the Ideal Patient Experience: Utilizing Patient/
Family Councils to Help Set the Stage and Develop the
Dialogue
Mary Ann Peugeot, CPA, Chair, Vanderbilt Patient/Family
Advisory Council; Gaye Smith, MBA, Chief Patient Experience
and Service Officer; Vanderbilt University Medical Center,
Nashville, TN
This poster describes the collaboration of
health care administrators and professionals
with patient/family councils to define and
implement initiatives for creating the ideal patient experience.
40
conference poster schedule
7:00 am – 8:00 am
12:30 pm – 2:00 pm
One Voice: One Hospital’s Journey to Transform Our
Hospital Inside and Out by Incorporating Patients and
Families into the Health Care Team
Jo Ann Melson, MSN, RN, FNP-BC, Family Nurse Practitioner;
Dannette Mitchell, RN, CCRN, Coordinator for PFCC
Practices; Lillian (Shelley) Nix, Senior Patient Representative;
Paula Tomanovich, BSN, RN, BC, Nurse Manager, ACE
Unit-Wilmington Hospital; Christiana Care Health Systems,
Wilmington, DE
This poster will offer knowledge to those systems interested
in incorporating patient- and family-centered practices
into their present culture. We will share our successes and
failures as we journey through planning, implementation, and
evaluation in our path forward.
Complicated Partnerships: Initiating the Prison Health
Patient-Centered Care Conversation
Karen Patterson, RN, RM, GDipAEd, PhD Candidate; Centre for
Health Research in Criminal Justice & Practice Development
Unit, Justice Health Statewide Services; New South Wales,
Australia
Prison and health care is a complicated partnership. Patientcentered care is unverified in this unique context. This poster
draws on the experiences of patient/prisoners, officers, and
health professionals from New South Wales, Australia to
initiate the prison health patient-centered care conversation.
Measuring the Success of Patient/Family Advisors
Sharon Cross, LISW, Patient/Family Experience Advisor Program
Manager; Ohio State University Medical Center, Columbus, OH
Measuring the impact of Patient/Family Advisors can be
difficult when data is sparse and often anecdotal. Using
several methods of data collection may provide a better
business case for Advisor credentialing and management.
conference posters
The MyStory Journey: Capturing Each Child’s Story
and Personalizing the Care We Provide to Pediatric
Patients at the University of Minnesota Amplatz
Children’s Hospital (UMACH)
Cheristi Cognetta-Rieke, BSN, RN, Nurse Manager; University
of Minnesota Amplatz Children’s Hospital & University of
Minnesota Medical Center, Fairview, Minneapolis, MN
The MyStory initiative has been funded by
the Picker Institute as an Always Event™, to
be implemented at UMACH. The goal of
MyStory is to capture each individual pediatric patient’s
“story” and to use this to personalize care.
Creating Healing Partnerships by Elevating
Volunteerism in the Emergency Trauma Department
Joseph Feldman, MD, FACEP, Chairman, Department of
Emergency Trauma Department; Sandy Kissler, Secretary/
Treasurer of the Advisory Board of Directors, Foundation Board
of Trustees; Caryn Loffman, MSW, Program Coordinator, Take
a Break Program; Hackensack University Medical Center,
Hackensack, NJ
This program’s intention is to provide family members and/or
significant others the opportunity to leave the bedside of their
loved one for a period of respite or time to manage personal
affairs by using specially screened and trained volunteers.
Creating a Supportive Environment for Patient- and
Patient and Family Advisors Partner in the Delivery of
Care Through Peer-Based Interactive Role and Support
Jane Willson, SLPD, Director of Rehabilitation Services;
Georgia Health Sciences Health System, Augusta, GA
Kim Buettner, Supervisor, Patient Education and Advisory
Program; Christine Healy, LCSW, Social Worker; Monica
Vakiner, RN, BSN, Patient Advisor; Moffitt Cancer Center,
Tampa, FL
Essential Family Perspectives Directing Progress
Toward the Family-Centered Transition and Eliminating
Staff Resistance
Lora Asbury, Parent Advisor/President Winchester Medical
Center NICU Parent Advisory Council; Winchester Medical
Center NICU, Winchester, VA
Educating staff through a firsthand video shows new
perspective from families and expresses the impact their
powerful voice makes when incorporating the family-centered
initiative. When families establish the goals and direction, it
creates passion and awareness for critical change.
The Patient and Family Advisory Program offers a peerbased interactive role connecting advisors with patients
and families who receive care at Moffitt. The discovery,
development, and implementation of necessary tools to
support these advisors will be shared.
Lessons Learned: Creating an Orthopedic Patient and
Family Partnership Council
Gregg Strathy, MD, MS, Medical Director for Development,
Orthopedic Surgery; Park Nicollet Health Services, St. Louis
Park, MN
While pursuing improvement initiatives centered on care of
patients undergoing hip and knee replacement, we realized
we were not including patients and families adequately. We
put our work on hold until the Council became operational.
Advisory Councils—The New Standard for Patient/
Family Engagement
Susan Newcomb, Family Advisor; Stephanie Reed, BSN, RN,
Clinical Head Nurse; Penn State Hershey Children’s Hospital,
Hershey, PA
Sharon Cross, LISW, Patient/Family Experience Advisor
Program Manager; Cortney Forward, Patient/Family Experience
Advisor; Ohio State University, Medical Center, Columbus, OH
Bedside Shift Report was implemented at Penn State
Hershey Children’s Hospital, but not without some setbacks
and obstacles. This poster describes the process and
lessons learned, including the education process of the
nursing staff and buy-in from nursing leadership.
“Taking It to Heart” Cardiovascular Services at
Wellspan Health Partners with Patient and Family
Advisors
Sharon Douglas, RN; Wade Markel, RRT, Director of Invasive
Cardiology; Rebecca Senft, RN, Liaison, Patient Educator;
Tammy Sterner, RN, BSN, CNE, Director of Non Invasive
Cardiology; Wellspan Health, York, PA
The Cardiovascular Service Line at Wellspan Health
has achieved success over the course of three years
in sustaining a council that is focused, energetic, and
motivated to contribute to improving the patient and family
experience within our health system.
Ohio State has embarked on a mission to share best
practices across the multi-hospital academic medical center
through the creation of department, business unit, and
system-wide Advisory Councils. This poster describes key
steps and lessons learned.
p o s t e r s
The Bumpy Road to Success—Implementing Bedside
Shift Report at Penn State Hershey Children’s Hospital
c o n f e r e n c e
This poster will highlight the journey of the Rehabilitation
Services Department in creating a patient- and familycentered environment with the outcome being seven
consecutive winners of the health system’s Family
Choice Awards.
Partnering to Improve Outcomes: Our Journey to
Develop, Implement, and Evaluate a Patient
Care Journal
Deena Casey, RN, BSN, Assistant Manager, Inpatient Oncology
Unit; Michelle Stimec, RN, BSN, CRRN, Assistant Clinical
Manager; The Christ Hospital, Cincinnati, OH
The purpose of our poster is to share our process that
we utilized in creating a Patient Care Journal. Content
summarizes strategies to develop, implement, and evaluate
our Journal, with participation from patients, families, and
multidisciplinary staff.
41
conference posters
Patient- and Family-Centered Rounds on an Inpatient
Geriatric Hospital Ward and Ability to Improve Patient
and Family Perception of Care: Results of SemiStructured Interviews
Jeffrey Schlaudecker, MD, Assistant Professor, Family and
Community Medicine; Department of Family and Community
Medicine, Division of Geriatric Medicine; The University of
Cincinnati; Anna Stecher, BS, Medical Student; University of
Cincinnati College of Medicine, Cincinnati, OH
This poster summarizes our research study aimed at better
understanding the impact of patient- and family-centered
rounds compared to traditional rounds on hospitalized
geriatric patients and their families, through semi-structured
interviews.
Partnering with Parents on a Congenital Heart Disease
Quality Improvement Project: Methods, Benefits,
and Barriers
Heather Langlois, MSW, LICSW, Social Worker; Rachel Steury,
MSN, CFNP, Nurse Practitioner, Professional Practice Specialist;
Children’s National Medical Center, Washington, DC
Children’s National Heart Institute has committed to
improving parental engagement in quality improvement
in conjunction with The National Pediatric Cardiology
Improvement Collaborative. This poster describes our
experience in parental engagement, identifies potential
barriers, and highlights the benefits of parental involvement.
Patient Advisors—Now That You Have Them, What Do
You Do With Them?
Food and Nutrition Services Working Collaboratively with Christine Abbott, Administrative Clerk, Family Services
Patient/Family Centered Care Team to Improve Patient
Development; Nettie Engels, Patient Advisor; T. Nicole Johnson,
Satisfaction with Food Services
MBA, BBA, PMP, Coordinator, Family Services Development;
c o n f e r e n c e
p o s t e r s
Nicole Johnson, MBA, BBA, PMP, PFCC Program Coordinator;
Georgia Health Sciences University Medical Center; Augusta, GA
In early 2011, the Georgia Health Sciences University Medical
Center Patient- and Family-Centered Care Team formed
Unit Quality Councils with the purpose of improving patient
satisfaction. Food and Nutrition Services was represented on
councils and their collaborative actions resulted in improved
food service patient satisfaction.
Patient and Family Shadowing: Walking the Walk to CoDesign Care Experiences with Patients and Families
Patricia Embree, BABS, Senior Director of Project Management;
Michelle Giarrusso, RN, BSN, MS, Senior Project Manager; Lisa
Schraeder, BS, MS, Organizational Development Consultant;
Innovation Center of UPMC, University of Pittsburgh Medical
Center, Pittsburgh, PA
Use Patient and Family Shadowing (PFS) as a low-tech, easyto-implement, high-impact technique that obtains feedback
from patients and families by creating real-time Patient and
Family Advisory Councils (PFACs) to incorporate these
valuable perspectives into the ongoing co-design of care
experiences.
Bernard Roberson, MBA, BA, HSC, Administrative Director,
Patient- and Family-Centered Care, Georgia Health Sciences
Health System, Augusta, GA
Health systems can utilize patient advisors for more than
just serving on advisory councils. Our Certificate Program is
designed to educate patient advisors on new ways to serve
and to help provide them with skills to be successful.
Collaborating with Patients and Families: Creating an
ICU Guidebook
Amy Haverland, BS, BSN, RN, Critical Care Nurse Educator;
Desiree Wood, RN; University of Washington Medical Center,
Seattle, WA
Former patients and family members reported that the
amount of information to take in during the ICU stay was
overwhelming and stressful. The ICU Patient and Family
Advisory Council (PFAC) recommended development of a
reference manual for information frequently presented.
Using Experiences of Parent Advisors to Improve How
Health Care Professionals Deliver Difficult News in
the NICU
Zak Goldman, Parent Experience, Parent Advisor; Kristy
Macdonell, Master Social Worker; Mount Sinai Hospital,
Toronto, ON, Canada
This poster will provide a framework for health care
professionals to assist in delivering difficult news and offer
ways to develop a clear, consistent, and therapeutic process
for communicating effectively with families.
“What a great opportunity to see how the
world in health care is changing, and how
valuable it is to have patients and families
be involved in medical care.”
42
conference posters
Women’s Health/Pediatrics Family Advisory Council
Mindy Neff, RN, MSN, IBCLC, Maternal Child Educator; Nurse
Manager; Joyce Swisher, RN; Christiana Care, Newark, DE
Patient- and family-centered care is the collaborative
partnership among health care providers and patient and
families to improve patient satisfaction, staff satisfaction,
safety, and quality of care. This poster will share how a
Patient and Family Advisory Council can transform the
culture of the organization.
Partnering with Parents to Improve Patient/
Family Education
Joan Morgan, MSHA, MBA, RN, Education Consultant;
Cincinnati Children’s Hospital Medical Center, Cincinnati, OH
Parent input into the patient education review process can
have a significant impact on the final education given to
families. This poster reviews basic health literacy principles
and discusses how to involve patients/families in the creation
of patient education materials.
Volunteer Ambassador Program: High Touch Safe
Patient- and Family-Centered Care in Action
Heart2Heart Teen Volunteer Mentoring Program for
Pediatric Cardiac Patients
Kathy Berube, MA, Director, Volunteer Services; Judy Lucas,
Chair, Patient Advisory Board; Ellen Moscinski, LCSW, Director
of Patient Relations; Maine Medical Center, Portland, ME
Christine Rich, MS, BSN, RN, Staff Nurse III, Lauren Smizer, BA,
Child Life Specialist; Children’s Hospital Boston, Boston, MA
The Volunteer Ambassador Program is a joint project
between the volunteer and patient relations departments that
provides support to patients, families, and staff to serve as
an avenue for addressing non-clinical support services to
help identify potential concerns/complaints.
Linda Gilgore, Family Advisor; Penn State Hershey Children’s
Hospital, Hershey, PA
The Family Greeter Program is a volunteer opportunity for
families to offer support to newly admitted families at the
Penn State Hershey Children’s Hospital. Partnering with
the Family Advisory Council, the process, training, and
fundamentals of the program were developed.
Partnering with Families in a Culture of Safety
The purpose of this poster is to demonstrate the high level
of partnership between families and hospital leaders/staff at
The Children’s Hospital of Philadelphia in building a Culture
of Safety.
Transforming the Patient and Family Experience in an
Academic Health Care Setting
Daryl Bell, BA, MDiv, Co-Chair Patient and Family Advisory
Council/Professional Practice Leader for Spiritual Care; Anndale
McTavish, MA, Co-Chair, Patient and Family Advisory Council;
Marla Rosen, Patient Experience Advisor; Kingston General
Hospital, Kingston, ON, Canada
This poster will outline how Kingston General Hospital has
begun to ensure the voice of the patient is heard at every
level of the organization and will include the logistics of
forming/sustaining an advisory council and ensuring an
advisor sits on every committee making decisions on patient
care.
Lynnie Reid, Family Initiatives Coordinator/FAC Co-Chair; Susan
Shanske, LICSW, Clinical Social Worker; Children’s Hospital
Boston, Boston, MA
The existence of a family advisory council (FAC) is an
important step in ensuring patient- and family-centered care.
To sustain effective partnerships, the FAC must constantly
reevaluate. This poster illustrates our efforts to engage and
empower our FAC.
The Sickle Cell Disease Family Advisory Board: An
Essential Partner in Continuously Improving the Health
of People Living with Sickle Cell Disease
Nancy Caperino, MSW, Social Worker; Nathan Hagstrom, MD,
Medical Director; Cecelia Pepers-Johnson, MS, Family Advisor/
Chair of Family Advisory Board; Connecticut Children’s Medical
Center, Hartford, CT
A Family Advisory Board is an invaluable partner for any
organization providing treatment for people with sickle cell
disease through creating educational programs for families
and health care staff, providing invaluable insights into space
design and treatment protocols, and increasing awareness.
p o s t e r s
Darlene Barkman, MA, Family Consultant; The Children’s
Hospital of Philadelphia, Philadelphia, PA
From Existence to Engagement: One Family Advisory
Council’s Journey Toward Leading Institutional Change
c o n f e r e n c e
Families Supporting Families Through Family
Greeter Program
A Teen Volunteer Mentoring Program has been established
and successfully piloted in a large pediatric cardiovascular
program. The purpose of this program is to support
children hospitalized with congenital heart defects with teen
volunteers also born with cardiac disease.
Development of a Parent/Family Advisory Board Track
at an International Medical Conference
Leslie Hazle, MS, RN, CPN, Director of Patient Resources,
Cystic Fibrosis Foundation, Bethesda, MD; Kathryn Sabadosa,
MPH, Research Associate, The Dartmouth Institute for Health
Policy and Clinical Practice, Lebanon, NH; Teresa Schindler,
RD, CF Dietitian, Rainbow Babies and Children’s Hospital,
Cleveland, OH
A one day Advisory Board track was added to the
International Cystic Fibrosis (CF) Medical Conference to
promote patient- and family–centered care and collaborative
self-management among health care professionals, parents,
and partners of people with CF in improving care.
43
conference posters
From the Classroom to the Bedside: Parent
Testimonials Assist Medical Students and Resident
Physicians in Understanding the Positive Impact of
Linda Kim, BS, CCLS; Alice Pengra, RN, BSN, MBA/HCM,
Specialty Director for Pediatrics/Co-Chair Pediatric Parent
Advisory Board; Shannon Rohrer-Phillips, MSW, Parent Advisory
Board Member; Georgetown University Hospital, Washington,
DC
Annually, the Pediatric Parent Advisory Board hosts a
Pediatric Grand Rounds for the purpose of sharing their
testimonials with the medical students and residents. Their
mission is to help them understand the impact they have on
patients and families.
Integrating the Family Voice When Teaching
Communication Strategies in New Nurse Orientation
c o n f e r e n c e
p o s t e r s
Colleen LaBelle, Parent Advisor; Maureen McAfee, RN, BSN;
Carol Parry, MA, Family Centered Care Specialist; Seattle
Children’s Hospital, Seattle, WA
This poster highlights a curriculum for new nurses to
concurrently learn communication strategies and explore
the family experience through open dialogue with parents;
enabling them to better translate abstract concepts into
practical steps and enhance their practice.
Partnering with Families for the Ideal Perioperative
Experience: Videolink Development for Staff Education
Linda Cunningham Lawler, RN, BSN, Family Services
Coordinator, Perioperative Services; Susan Kamerling, RN,
MSN, BC, Family Services Coordinator, Perioperative Services;
Staff gain insight into patient- and family-centered care by
listening to patients and families. This poster shares the
development of an educational video and its placement as a
videolink on the hospital’s intranet. Advantages, limitations,
and integration into practice will be featured.
Start the Way You Want to Finish: Initiative to Improve
Communication and Shared Decision-Making with
Families in an Academic Medical ICU
Linking Patient- and Family-Centered Care and Culturally
and Linguistically Appropriate Services to Clinical and
Academic Accreditation
Kent Guion, MD, Vice President for Diversity and Inclusion;
Georgia Health Sciences University; Vivian Rice, CMI, Manager,
Culturally and Linguistically Appropriate Services; Georgia Health
Sciences Medical Center, Augusta, GA
Organizational clinical and academic accreditations have
become more focused on measured outcomes. The role and
activities of patient- and family-centered care has been firmly
integrated in both the Joint Commission and the Commission
on College accreditation process at our institution.
Diversity – It’s Broader than You Think
Christine O’Meara, MA, MPH, Program Development Coordinator;
Georgia Health Sciences University, Augusta, GA; Vivian Rice,
BSM, Manager, Culturally and Linguistically Appropriate Services;
Naomi Williams, MPH, CHES, IC Patient Advisor/Family Support
Coordinator, Cancer Center; Georgia Health Sciences Medical
Center, Augusta, GA
Increasing the understanding of diversity among health
care professionals, staff, and students requires creativity,
engagement, and self-assessment. Two successful teaching
tools will engage participants and inform them how to convey
diversity data interactively and visually to meet varied learning
styles.
Engaging the Community Through Education: Creating an
Academic/Service Partnership
Donna Adams, LMSW, Patient Advisor; Lee Powell, MBA, PHR,
Director of Talent Acquisition; Sharon Vincent, EdD, MSN, BSN,
ADN, RN, Director, Professional Nursing Practice and Center for
Nursing Education; Georgia Health Sciences Medical Center,
Augusta, GA; Herecender Walton, MSN, Dean of Health Sciences,
Aiken Technical College, Aiken, SC
This poster describes Georgia Health Sciences Medical
Center interdisciplinary Patient- and Family-Centered Care
team’s planning, implementation, and evaluation of engaging
academia to incorporate patient- and family-centered care into
their health care curriculums.
Sarah Adeyinka, MSW, LSW, Family Liason Social Worker;
Megan Carr-Lettieri, MSN, ACNP, BC, CCRN, Nurse Practitioner,
Medical Intensive Care Unit; Hospital of the University of
Pennsylvania, Philadelphia, PA; Horace DeLisser, MD,
Associate Professor of Medicine, Perelman School of Medicine;
University of Pennsylvania, Philadelphia, PA
Leveraging Mobile Devices Technology: Put PFCC Tools
into the Hands of Patients, Families, Providers, and Health
Professions Students Anytime, Anywhere
Family meetings happen when you may least expect them;
and first impressions last. We are initiating an educational
program for health care providers to foster proactive,
comprehensive, multidisciplinary communication with patients
and families, in particular, as it relates to end-of-life care.
The PFCC BASICS application for mobile devices gives health
professions students, providers, and consumers (patients/
families) an interactive tool to apply patient- and familycentered principles and practices. Participants will view the
app, learn development tips, and identify patient- and familycentered related topics adaptable to app formats.
Christine O’Meara, MA, MPH, Program Development Coordinator;
Donna Adams, LMSW, Patient Advisor; Georgia Health Sciences
Medical Center, Augusta, GA
“Best conference I’ve been to in all my years as
an RN…it was transformational!”
44
conference posters
Educational Initiatives of Patient- and Family-Centered
Care Integration: Partnerships with Professional
Development Specialists
Lisa Fidyk, MSN, MS, RN, Professional Development Specialist;
Beth Smith, MSN, RN, Professional Development Specialist;
The Hospital of the University of Pennsylvania, Philadelphia, PA
Educational strategies for patient- and family-centered care
were developed by Professional Development Specialists,
nursing leadership, and the Patient Advisory Council for
integration of core concepts into an academic medical center
for adults with the goal to strengthen patient and family
partnerships.
Patient Brochure: Making the Most of Your Clinic Visit—
Tips for Patients from Patients
Charlotte Hill, MA, Curriculum and Instruction, Patient Advisor;
Sandra Piscitello, RN, Patient Advisor; Adele Wirch, R.EEG/
EPT, CNIM, Senior Clinic Manager/Staff Co-Lead, Outpatient
Advisory Council; University of Washington Medical Center,
Seattle, WA
The Outpatient Advisory Council of University of Washington
Medical Center used patient, provider, and staff feedback to
determine elements of an effective clinic visit. The result, an
information-sharing brochure, supports UWMC’s mission to
provide exceptional patient- and family-centered care.
How Social Work Integrates Patient- and FamilyCentered Care in the Sarcoma Program at Mount Sinai
Hospital
Laura Borges, RN, Neonatal ICU Nurse; Kate Robson, BA,
MEd, Parent Coordinator; Sunnybrook Health Sciences Centre;
Toronto, ON, Canada
Trisha Woodhead, CCW, BA, MSW, Social Worker, Outpatient
Oncology; Sue Worrod, BSW, MEd, MSW, Social Worker,
Sarcoma Program; Mount Sinai Hospital, Toronto, ON, Canada
Multi-bed units help families learn by observing other
families and staff members in action. Single-bed units have
many advantages but limit observational learning. We can
compensate for this limitation by setting educational goals
and identifying alternative educational vehicles.
Through a case study, this poster will illustrate how
inpatient and outpatient Social Work plays an integral role
in seamlessly implementing the principles of patient- and
family-centered care in the Sarcoma Program at Mount Sinai
Hospital in Toronto.
Partnering with Patients and Families to Reduce Central
Line Associated Blood Stream Infections (CLABSI) in
Pediatric Hematology/Oncology Patients
Vision to Reality: Upstate Golisano Children’s Hospital,
An Award-Winning Design Moving into Practice
Nathan Hagstrom, MD, Director, Hematology-Oncology;
Catherine Bixby, BS, MS, Clinical Research Assistant; Jill Baral,
BS; Founding Member of Connecticut Children’s Medical
Center’s Cancer Family Advisory Board; Connecticut Children’s
Medical Center, Hartford, CT
Partners for Safety: Patient and Family Hand Hygiene
Kathy Howland, Patient and Family Advisor; Marilyn Potgiesser,
RN, Coordinator, Patient- and Family-Centered Care; Bronson
Methodist Hospital, Bronson Healthcare Group, Kalamazoo, MI
Learn how the passion and dedication of a patient and
family advisor lead Bronson Healthcare to create a strategic
initiative that instructs patients and family members about
hand hygiene and supplies them with the tools to ensure a
safe environment.
How to Showcase Patient- and Family-Centered Care
Programs
Paul Seese, RN, MSN, Coordinator, Family Resource Center;
Nationwide Children’s Hospital, Columbus, OH
Providing a venue for staff and families to share familycentered care programs is an important way of creating a
culture of family-centered care. A poster expo is an effective
way to celebrate, educate, and inspire further advances in
patient- and family-centered care.
Patient- and Family-Centered Care principles were
implemented for strategic planning, operations, and
decision-making to change leadership, culture, and physical
environment. The impetus was the construction of a six-story,
patient care tower, crowned by an award-winning 71-bed
children’s hospital.
Rubber Duckies in Every Tub—Patient and Family
Driven Facility Design
Timothy Flack, Attorney, Chairman Elect, Family Partner’s
Council; Janet Phillips, MAEL, Executive Consultant to the
President; Le Bonheur Children’s Hospital, Memphis, TN
p o s t e r s
We are participating in the NACHRI Pediatric Hem-Onc
Collaborative to reduce Central Line Associated Blood
Stream Infections (CLABSI). We collaborated with patients/
families and our Cancer Family Advisory Board to create
an educational tool aimed at increasing family/patient
involvement in reducing/preventing CLABSI.
Melissa McElroy-Elve, MS, MSLIS, Director, Upstate Family
Resource Center; Leola Rodgers, MPH, Associate Administrator
of Upstate Golisano Children’s Hospital, Oasis and HealthLink;
Upstate Medical University, Syracuse, NY
c o n f e r e n c e
Single-Room NICUs and Family Education:
Compensating for Loss of Observational Learning
Opportunities with Alternative Models
This poster will describe processes used to include patients
and families in the design of a new replacement facility
using both formal and informal processes to ensure that the
resulting environment would support patient- and familycentered care practices.
Verifying Effectiveness of Family Zone in Patient Rooms
for Family Presence and Interaction with Care Givers
Hyun-Bo Seo, PhD; Georgia Tech, Atlanta, GA
This study empirically verifies effectiveness of family
areas in patient rooms for family presence and interaction
with caregivers.
45
conference posters
Critical Care Family Respite Center
Coren Ross, Patient/Family Advisor; Sherry Smith, Patient
and Family Satisfaction Coordinator; Maria Theron, RN,
MSN, CCRN, Executive Director, Critical Care Division and
Emergency Department; Memorial Health University Medical
Center, Savannah, GA
p o s t e r s
c o n f e r e n c e
Janne Weis, PhD Student, Clinical Nurse Specialist;
Copenhagen University Hospital, Rigshospitalet,
Copenhagen, Denmark
How can you create a patient- and family-centered
experience for families of patients in Critical Care?
Through generous donations and the diligence of a young
patient’s parents, we are now able to offer overnight
accommodations for families of critical care patients.
Communication is a critical factor when practicing familycentered care. Guided Family-Centred Care is an intervention
based on structured communication between parents and
nurses throughout hospital stay focused on what is perceived
as difficult by parents.
Putting Patients First: The Creation of a Standardized
Patient- and Family-Centered Care Approach to
Surrogacy in a Canadian Tertiary Care Centre
Chinese Nurses’ Attitudes About Patients and Families
As Advisors
Susan Guest, RN, MN, IBCLC, Clinical Nurse Specialist;
Mary-Katherine Lowes, BA, BSW, MSW, RSW, Perinatal Social
Worker, Educational Coordinator; Mount Sinai Hospital,
Toronto, ON, Canada
This poster will feature the development of an interprofessional Gestational Carrier policy for use in a regional
tertiary care centre and will provide practice guidelines
congruent with the core aspects of patient-centered care
while operating within the Canadian health care system and
current legislative landscape.
Supporting Patients and Families Affected by Autism:
The Development of the University of Michigan Health
System’s (UMHS) Autism Spectrum Disorders (ASD)
Multidisciplinary Work Group
Jacob Mouro, ICPS, Sergeant, Hospital Security; University of
Michigan Health System, Ann Arbor, MI
In response to the rise in patients and families affected by
autism, the UMHS ASD Multidisciplinary Work Group formed
with the goal of providing them with the best support and
care across all environments within the health system.
Family-Centered Care in Pediatric Emergency
Medicine: What Parents Want and Value
Terri Byczkowski, PhD, MBA, Assistant Professor; Cincinnati
Children’s Hospital Medical Center, Cincinnati, OH
No validated measure for family-centered care in pediatric
emergency medicine exists. This lack of adequate
measurement tools impedes progress in implementing
family-centered care. The aims of this study were to identify,
define, and develop questions to measure the dimensions
of family-centered care important to parents.
Patient Engagement Research Project: Engaging
Patients in the Design and Delivery of Early
Intervention Mental Health Services
Fiona Wilson, BA, CPRP, Coordinator, Peer Support Services/
Project Team Member, Patient Engagement Project; St.
Joseph’s Healthcare Hamilton, Hamilton, ON, Canada
Using market research methods, the Patient Engagement
Project has solicited the preferences and opinions of
patients in designing an Early Intervention Service to
maximize the likelihood of patients making initial contact,
attending their first appointment, and staying in the
program.
46
Initial Testing of Guided Family-Centered Care:
Evaluation and Improvement of an Intervention
Promoting Parent Communication and Support
Marcia Pertrini, PhD, FAAN, Dean; Yan Qun Liu, PhD Student;
Wuhan University HOPE School of Nursing, Wuhan, Hubei
Province, China
This study investigated Chinese nurses’ attitudes about
patients and families as advisors in their own health care.
Engaging Patients, Families, and Staff in the Plan of
Care Through the Use of Bedside Reports
Jean Gaudette, BS, RN, Nurse Manager; Mary Jean Vickers,
DNP, RN, ACNS, BC, Program Manager, Clinical Development;
University of Minnesota Medical Center, Fairview,
Minneapolis, MN
Describe the development of patient- and familycentered care partnerships utilizing bedside handoffs and
whiteboards as a method of engaging patients, families,
and interdisciplinary staff. A staff led initiative resulted in
improved patient satisfaction scores and participation of the
patient in care.
Patient- and Family-Centered Care from Entry to Exit…
Michael Barnes, Patient Access Services Manager; Kaili Nixon,
RN, Assistant Nurse Manager Med/Surg, Patient Experience
Leader; Chowan Hospital, Edenton, NC; Gaye Branch, RRT,
RCP, Respiratory Care Manager/Patient Experience Leader;
Bertie Memorial (UHS); Bertie Memorial Hospital, Windsor, NC
Bertie Memorial and Chowan Hospitals, two critical access
hospitals within Vidant Health, are committed to advancing
the culture of patient- and family-centered care through
involved leaders, engaged staff, and active patient-family
advisory councils.
The Journey: A Guide to Smooth the Ride—The Family
is Here to Stay
Joseph DeCostanza, MSN, RN, Trauma Research Nurse;
Memorial Regional Hospital, Hollywood, FL
Incorporating families in developing a patient- and familycentered (PFCC) intensive/critical care unit is a journey worth
embarking. Disappointing patient satisfaction scores inspired
the creation of an ICU PFCC Orientation Book. This book has
enhanced a PFCC environment and culture.
conference posters
A Collaborative Approach in Supporting Health Care
Providers to Partner with Patients and Families as
Allies for Quality and Safety Through a Patient Service
Navigator Program
Jessica Hansley, BSW, Patient Service Navigator; John Stewart,
MD, Hospitalist/Medical Director; Erin Tallman, OTR/LMHA,
Vice President/Director of Patient and Family Advocacy;
Onslow Memorial Hospital, Jacksonville, NC
This poster will share our experiences of the Patient
Services Navigator Program as an effective way to improve
quality, safety, and the patient and family experience in the
hospital setting.
Setting Your Compass for Patient- and Family-Centered
Care Rounds
Nettie Engels, MEd, EdS, Patient Advisor; Walter J. Moore, MD,
Senior Associate Dean; Christine O’Meara, MA, MPH, Program
Development Coordinator; Georgia Health Sciences University,
Augusta, GA
Keri Nasenbeny, RN, BSN, MHA, Associate Director, Critical
Care; Desiree Wood, BA, RN, Staff Registered Nurse;
University of Washington Medical Center, Seattle, WA
An ICU Patient and Family Advisory Council was established
as a means to shift the culture of our units toward patientand family-centered care by developing innovative programs
that would improve patient, family, and staff satisfaction.
Opinions of Hospital Staff Regarding Family Presence
(FP) at the Bedside During Resuscitation
Kathleen Shubitowski, MSN, RN, CEN, Clinical Nurse Specialist,
Emergency Department; Barbara Tilden, MS, RN-BC, Manager,
Clinical Professional Development and Magnet Recognition
Program; South Shore Hospital, South Weymouth, MA
Baseline measures of opinions regarding presence of family
during resuscitation were established prior to launching
family presence initiative. Provider education was designed
based on evidence in literature addressing barriers to
implementation with the goal to increase the incidence of
family presence without increasing anxiety of providers.
This poster will showcase a model for implementing patientand family-centered care in a Social Work, Child Life, and
Music Therapy clinical setting. Areas covered include using
rounds to promote patient and family collaboration, how to
offer clinical options, and tools for tracking implementation
of the model.
Patient- and Family-Centered Communication Boards
Teresa Booth, BSN, RN, NE-BC; Baylor University Medical
Center, Dallas, TX
The purpose of this poster is to describe how we
successfully created and implemented patient- and familycentered communication boards placed in patient rooms in
an acute care hospital to promote patient and health care
team communication.
Pediatric Family-Centered Rounds: A 360 Degree View
Pamela Griffin, Family Advisor on Staff/Founding Member
Family Advisory Council; Barbara Hall, RN, Patient and
Family Advocate/Chairperson, Patient- and Family-Centered
Care Initiative; Tricia Willis, RN, Nursing Team Leader/CoChair Hopkins Children’s Center Family Centered Rounds
Committee; Johns Hopkins Hospital, Baltimore, MD; Janet
Serwint, MD, Professor, Pediatrics; Megan Tschudy, MD,
Fellow, General Academic Pediatrics; Johns Hopkins School of
Medicine, Baltimore, MD
p o s t e r s
Changing the Culture of an Intensive Care Unit
Through a Patient and Family Advisory Council
Lisa Morrise, MA, Patient and Family Centered Care
Coordinator; Katy Jo Stevens, MSW, LCSW, Administrative
Director, Family Support Services; Primary Children’s Medical
Center, Salt Lake City, UT
c o n f e r e n c e
An underutilized opportunity to advance quality and safety,
teaching rounds can be transformed into interdisciplinary
patient- and family-centered bedside rounds with patients
and families as partners. This poster will share the planning
process to implement Patient- and Family-Centered Rounds
in the adult care setting.
Collaborative Assessment and Intervention in
Clinical Care
OR Family Tour Night
Cindy Boyd, RN, CPN(C), RNFA; Dawn Korol, RN, CPN(C),
Team Leader; Keith Taylor, Chair, Patient- and Family-Centered
Care PFA Committee; Thunder Bay Regional Health Sciences
Centre, Thunder Bay, ON, Canada
One of the worst feelings in the world for a parent is to
hand your child to a stranger and listen to them cry as the
operating room doors close. We have found a way to make
it better for all.
Collaborative advisory groups were convened to explore
the experiences of all participants in family-centered rounds
(FCR). Key advisors were families, patients, physicians
(attendings, residents), medical students, nurses, social
workers, and case managers who participate in FCR.
Discharging the Medically Complex Infant from
the NICU
Stephanie Adam, RN, BSN, Assistant Nurse Manager, NICU;
Women & Infants Hospital, Providence, RI
Discharging medically complex NICU infants to home is a
challenge for both providers and families. This poster will
highlight the process of discharging these infants and their
families ensuring that all team members, including families,
are on the “same page.”
47
conference posters
The Poke Program: A Voice and Choice for Children
Undergoing Pokes and Procedures
Sandra Merkel, MS, RN-BC, Clinical Nurse Specialist,
Pediatric Acute Pain Service, University of Michigan School
of Nursing; Julie Piazza, MS, CCLS; University of Michigan
Health System, Ann Arbor, MI
Needlesticks are a routine part of care for children in
medical settings. These procedures often cause children
pain and anxiety. To increase comfort, a patient- and
family-centered program was developed to provide choices
to support children and parents through pokes and
procedures.
Scrapbooking, Journaling, and Charting as a Means for
Increasing Information-Sharing and Reducing Stress in
the NICU
c o n f e r e n c e
p o s t e r s
Jennifer Glick, PhD, NICU Family Advisor; University of
Washington Medical Center, Seattle, WA
48
At the University of Washington Medical Center Neonatal
Intensive Care Unit (UWMC NICU), parents are supplied a
journal to help them keep track of medical information and
to use to help reduce their stress levels.
Reflections of the NICU Family’s Journey Beyond the
First Year
Gwynn Bissell, RGN, Education and Parent Lead; Leeds
Teaching Hospitals; Yorkshire Neonatal Network, West
Yorkshire; United Kingdom
The review of family experiences was developed to
understand our family representative’s voyage of becoming
ambassadors to the Yorkshire Neonatal Network (YNN) and to
understand the long-term NICU family graduate experiences.
Proposed Paediatric Cardiac Rehabilitation Program
Joanne Telfer, BSc; Simon Fraser University, Burnaby,
British Columbia; Lynne Telfer, RN; Saskatoon City Hospital,
Saskatoon, SK, Canada
The Saskatchewan Union of Nurses, the Saskatchewan
Paediatric Cardiology Clinic, and the Adult Cardiac
Rehabilitation Program are collaborating to develop a
paediatric Cardiac Rehabilitation Program. This program is
designed to address the physical and psychosocial needs
of patients and their families, providing them with life-long
skills that will enable them to independently manage their
health with confidence and knowledge.
Learnings from a National Symposium on Raising
Awareness of Patient and Family Engagement and Its
Benefit to the Design of the Canadian Health
Care System
Wendy Medved, MHSc, Monitoring Lead, Health Council of
Canada; Toronto, ON, Canada
This poster describes outcomes of the October 2011 Health
Council of Canada symposium that explored the challenges
and opportunities in patient engagement and the benefits of
involving patients in the design of the Canadian health care
system.
Partnering to Accelerate the Rate of Positive
Change: The Collaborative Experience of Lauren’s
Hope Foundation and the NICU at Lehigh Valley
Health Network
Lorraine Dickey, MD, MBA, FAAP, Chief, Division of
Neonatology, Lehigh Valley Health Network, Allentown, PA; Ann
Flood, Lehigh Valley Health Network Patient Advisor Volunteer,
Lauren’s Hope Foundation, Bath, PA
Philanthropists and health care leaders can leverage the
donor’s story to accelerate the rate of positive rate of change
within a health care system.
easy online registration!!!
Visit our website to register online: www.ipfcc.org
The 5th International Conference on Patient- and Family-Centered Care
Registration Information — If online registration is not an option, please fax form to: 301-652-0186
The registration fee includes educational sessions, conference syllabus, refreshment breaks, continental
breakfasts, welcome reception, and lunch tickets (M–T).
Early Bird—On or Before April 2, 2012
After April 2, 2012
Individuals...................................................... $945
Individuals.................................................... $995
Teams of 4 or more (per person)........ $875
Teams of 4 or more (per person)...... $925
Patient & Family Leaders....................... $475
Patient & Family Leaders..................... $525
One Day Fee (select date)..............$400
Student.......................................... $595
One Day (select date).................. $450
Monday, June 4
Tuesday, June 5
Wednesday, June 6
(Pinwheel Sponsors are eligible to receive a $50 discount, excluding One-Day fees)
Teams of 4 or more, please list other team members:
(attach list of name if more space is needed)
_________________________________________
_________________________________________
_________________________________________
_________________________________________
Cancellation Policy ($50 cancellation fee before April 2, 2012)
After April 2, 2012............$200 cancellation fee After April 23, 2012..................No Refunds
Please call the Institute if registering after April 30, 2012 for space availability. Conference may sell out early.
I have reviewed this
cancellation policy.
Tax Deductibility
Expenses for training, tuition, travel, lodging, and meals to maintain or improve professional skills may be TAX DEDUCTIBLE. Consult
your tax advisor.
Participant’s Full Name_______________________________________ Preferred Name (Nickname)______________________________
Degree(s)______________________Email (required)___________________________________________________________________
Organization___________________________________________________________________________________________________
Position/Title______________________________________________________________Department____________________________
Preferred Mailing Address Office
Home
(if hospital address, please include department, unit location, mail code, etc.)
Complete Address_______________________________________________________________________________________________
City____________________________________________________ State/Province______________ Zip/Mail Code_______________
Daytime Phone___________________________________________ Fax___________________________________________________
Please indicate special needs: (i.e., dietary, audiovisual, mobility)
Continuing Education Credit
Please note if you will be pursuing continuing education credits for:
Nurses
Physicians
Social Workers
Other (General Attendance Certificates will be available upon request)
Event Reservations
(Please indicate the events you plan to attend to calculate
final total.)
Sunday, June 3
______ _Fort Belvoir Community Hospital Tour: $15
Total Amount of Payment
(U.S. Funds) $___________ Discount Code (if applicable)_____________
______ Children’s National Medical Center Hospital Tour: $10
Choose Payment Type
______ _Special Luncheon with Jim Conway: $55
Check (Payable to Institute for Patient- and Family-Centered Care in
U.S. funds)
Monday, June 4
______ Networking Dinner — Medaterra Bistro: $35
Tuesday, June 5
Credit Card (Call the Institute with credit card information—
MasterCard/VISA)
�� Special Luncheon — Canadian Models of
Excellence: $55
Permission Statement
______ Networking Dinner — Medaterra Bistro: $35
I understand that my registration gives permission to the Institute
for Patient- and Family-Centered Care to use my name and contact
information in conference materials and to use my photograph(s)/
video images, including but not limited to, the Institute’s media pages
and website, newsletter, and other Institute promotional materials.
r e g i s t r at i o n
Please complete a separate form for each participant; reproduce as necessary. Type or print clearly. Registrations cannot be confirmed unless
entire form is complete and full payment is received. You will receive a confirmation number once registered.
For further information, contact
6917 Arlington Road, Suite 309, Bethesda, MD 20814
301-652-0281 • www.ipfcc.org
49
Your Session Preferences
Please review the brochure and select your Concurrent and Major Breakout session choices by
indicating your preference next to the session number.
Monday–10:45 am to 12:45 pm
Tuesday–11:30 am to 12:45 pm
Concurrent Sessions (Pages 17-19)
Concurrent Sessions (Pages 24–26)
A1
A2
A3
A4
A5
A6
A7
A8
A9
A10
E6
E7
E8
E9
E10
Monday–2:15 pm to 3:30 pm
Tuesday–2:15 pm to 3:45 pm
Major breakouts (Pages 19–20)
B1
B2
B3
B4
B5
Monday–3:45 pm to 5:00 pm
C1
C2
C3
C4
C5
r e g i s t r at i o n
E1
E2
E3
E4
E5
C6
C7
C8
C9
C10
Tuesday–10:00 am to 11:15 am
D1
D2
D3
D4
D5
D6
D7
D8
D9
D10
F1
F2
F3
F4
F5
F6
F7
F8
F9
F10
Tuesday–4:00 pm to 5:15 pm
G1
G2
G3
G4
G5
G6
G7
G8
G9
G10
Wednesday–8:00 am to 9:15 am
Major breakouts (Pages 31-32)
H1
H2
H3
H4
H5
Wednesday–9:30 am to 11:00 am
Concurrent Sessions (Pages 33-35)
I1
I2
I3
I4
I5
I6
I7
I8
I9
I10
I11
Wednesday–11:15 am to 12:30 pm
Concurrent Sessions (Page 35–37)
J1
J2
J3
J4
J5
J6
J7
J8
J9
J10
J11
Wednesday–2:00 pm to 3:15 pm
Concurrent Sessions (Page 37–39)
K1
K2
K3
K4
K5
K6
K7
K8
K9
K10
H6
H7
H8
H9
H10
H11
Think Ahead!
After the conference, make plans to take a team to Michigan…
With
Leadership
Support
from
50
2012 Pinwheel
Sponsors
PINWHEEL CHAMPION
Akron Children’s Hospital
Akron, OH
Anne Arundel Medical Center
Annapolis, MD
Baptist Health South Florida
Coral Gables, FL
Baptist Memorial Hospital for Women
Memphis, TN
Barnes-Jewish Hospital
St. Louis, MO
The Institute for Patient- and Family-Centered Care appreciates the
support of our Pinwheel Sponsors for their commitment to advancing the
understanding and practice of patient- and family-centered care. These
recognized leaders continue to make a significant difference in promoting
this philosophy of care, and thus serve as role models to us all.
East Tennessee Children’s Hospital
Knoxville, TN
Emory Healthcare
Atlanta, GA
Essentia Health
Duluth, MN
Flagstaff Medical Center
Flagstaff, AZ
Georgia Health Sciences Health System
Augusta, GA
Riley Hospital for Children at Indiana
University Health
Indianapolis, IN
San Jacinto Methodist Hospital
Baytown, TX
Seattle Cancer Care Alliance
Seattle, WA
Seattle Children’s
Seattle, WA
South Shore Hospital
South Weymouth, MA
Baylor Health Care System
Dallas, TX
Hasbro Children’s Hospital/Rhode Island
Hospital
Providence, RI
Brigham and Women’s Hospital
Boston, MA
Hennepin County Medical Center
Minneapolis, MN
St. Louis Children’s Hospital
St. Louis, MO
Bronson Healthcare Group
Kalamazoo, MI
Holland Bloorview Kids Rehabilitation Hospital
St. Luke’s Children’s Hospital
Boise, ID
Children’s Cancer Hospital at The University
of Texas M.D. Anderson Cancer Center
Houston, TX
Hurley Medical Center
Flint, MI
Stollery Children’s Hospital
Edmonton, Alberta, Canada
Joe DiMaggio Children’s Hospital at Memorial
Hollywood, FL
The Children’s Hospital of Philadelphia
Philadelphia, PA
Johns Hopkins Children’s Center
Baltimore, MD
Thunder Bay Regional Health Sciences
Centre
Children’s Hospital Colorado
Aurora, CO
Children’s Hospitals and Clinics of Minnesota
Minneapolis, MN
Children’s Hospital London Health
Sciences Centre
London, Ontario, Canada
Kaiser Permanente—San Diego
San Diego, CA
Kingston General Hospital
Kingston, Ontario, Canada
Memorial Healthcare System
Hollywood, FL
Methodist Le Bonheur Healthcare
Memphis, TN
Children’s Hospital of Pittsburgh of UPMC
Pittsburgh, PA
Miami Children’s Hospital
Miami, FL
Children’s Hospital at Providence
Anchorage, AK
Missouri Foundation for Health
St. Louis, MO
Children’s Medical Center
Dallas, TX
Moffitt Cancer Center
Tampa, FL
Children’s Mercy Hospitals and Clinics
Kansas City, MO
Monroe Carell Jr. Children’s Hospital
at Vanderbilt
Nashville, TN
Children’s National Medical Center
Washington, DC
Christiana Care Health System
Wilmington, DE
Cincinnati Children’s Medical Center
Cincinnati, OH
Clear Lake Regional Medical Center
Webster, TX
Columbia St. Mary’s
Milwaukee, WI
Covenant Children’s Hospital
Lubbock, TX
Dana-Farber Cancer Institute
Boston, MA
Dignity Health
San Francisco, CA
National Association of Children’s Hospitals
and Related Institutions (NACHRI)
Alexandria, VA
National Partnerships for Women and
Families/Campaign for Better Care
Washington, DC
Nationwide Children’s Hospital
Columbus, OH
North Carolina Center for Hospital Quality
and Patient Safety
Cary, NC
UNC Health Care
Chapel Hill, NC
University of Arizona Health Network
Tucson, AZ
University of Louisville Hospital
Louisville, KY
University of Michigan Health System
Ann Arbor, MI
University of Minnesota Medical Center,
Fairview
Minneapolis, MN
University of Rochester Medical Center
Rochester, NY
University of Wisconsin Hospital and Clinics
Madison, WI
Vanderbilt University Hospital
Nashville, TN
s p o n s o r s
Children’s Hospital of Michigan
Detroit, MI
UAB Hospital
Birmingham, AL
p i n w h e e l
Children’s Hospital Boston
Boston, MA
St. Francis Medical Center
Lynwood, CA
Vidant Health
Greenville, NC
Women and Infants Hospital of Rhode Island
Providence, RI
PINWHEEL SUPPORTER
Kasian Architecture Interior Design
Vancouver, British Columbia, Canada
Onslow Memorial Hospital
Jacksonville, NC
KI
Green Bay, WI
Poudre Valley Health System
Fort Collins, CO
Poltronieri Tang & Associates
Swarthmore, PA
* Commitments as of February 26, 2012
The pinwheel symbolizes the Institute’s commitment to enhance partnerships among health
care providers, patients of all ages, and their families in hospitals and community settings. The
pinwheel represents interaction and synergy. When all parts of the pinwheel work well together,
each part plays a vital role. This is our vision for patient- and family-centered systems of care.
Become a Pinwheel Sponsor! Call 301-652-0281 for information. www.ipfcc.org
51
Institute for patient- and family-Centered Care
6917 Arlington Road
Suite 309
Bethesda, Maryland 20814
RETURN SERVICE REQUESTED
The 5th International
Conference on Patientand Family-Centered Care
Partnerships for Quality and Safety
ABOUT THE INSTITUTE FOR PATIENT- AND FAMILYCENTERED CARE
Founded as a non-profit organization, the Institute for Patientand Family-Centered Care provides leadership to advance the
understanding and practice of patient- and family-centered care.
By promoting collaborative, empowering relationships among
patients, families, and health care providers, the Institute facilitates
patient- and family-centered change in health care settings serving
individuals of all ages and their families.
The Institute serves as a resource for policy makers, administrators,
program planners, service providers, educators, researchers,
design professionals, and patient and family leaders for advancing
the practice of patient- and family-centered care. It enhances
the quality of health care through the development of print and
audiovisual resources, information dissemination, policy and
research initiatives, training, technical assistance, and consultation.
June 4–6, 2012
omni shoreham hoteL
Washington, DC
When Care Is Patient- and Family-Centered:
• People are treated with dignity and respect. Patient and family
knowledge, values, beliefs, and cultural backgrounds are
incorporated into the planning and delivery of care.
• Health care providers communicate and share complete and
unbiased information with patients and families in ways that are
affirming and useful.
• Patients and families are supported and encouraged in
participating in care and decision-making at the level they choose.
• Collaboration among patients, families, health care leaders,
and providers occurs in policy and program development,
implementation, and evaluation; facility design; and professional
education, as well as in the delivery of care.
For more information about the Institute, visit www.ipfcc.org.

Conference Brochure - Institute for Patient- and Family

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