The Voice, Summer 2015 - Alzheimer Society of Ireland

Transcription

The Voice, Summer 2015 - Alzheimer Society of Ireland
The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
This Issue
• FORGET THE STIGMA CAMPAIGN
•staff development
• Autumn draw 2015
• ASI SERVICES
• THE AZURE PROGRAMME
• News from around the country
The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
Message from the CEO
Welcome to the Summer edition
of The Voice. We are halfway
through the year already, and
the first 6 months have been
extremely busy. On 1st April,
we had the first meeting of the
National Dementia Strategy
Monitoring Group which is being
coordinated by the Department
of Health. The Monitoring
Group, of which ASI is a member, is working to ensure
the views of people living with dementia and their
family carers are represented.
The Forget the Stigma Campaign was launched by
Minister Kathleen Lynch on 3rd June in Dublin. This
great campaign included images of ASI advocates,
Helen Rochford Brennan, Kathy Ryan & Sean Donal
O’Shea at Bus & Dart stations in Galway, Cork &
Dublin. We hope you have all signed the pledge to
Learn, Listen & Link to help banish the stigma of
people living with dementia.
As this is my last issue of The Voice, I would like to
offer my congratulations to my successor, Colette
Kelleher who will be joining The ASI in September. I
know you will all join me in wishing Colette the very
best in her new position.
Our biggest annual fundraiser, Alzheimer’s Tea Day
was held on the 7th May. We were thrilled to record
the largest amount of registrations to date for this
year’s campaign. Thousands of events took place
all around the country on the day, including one
in the Orchard Day & Respite Centre with clients
in attendance. We had the Corus Choir group
serenading everyone and it turned out to be a really
special event. A big thank you goes out to everyone
who held a Tea Day. You will find lots of fantastic
pictures from all parts of the country in this issue of
The Voice.
To all of you whom I have met during my time with
The ASI, I want to thank you for your support. I have
greatly enjoyed my time here and have no doubt that
ASI will continue to lead the way, thanks in no small
part to the incredible staff and volunteers who work
so hard to improve the lives of people living with
dementia and their carers.
I wish you and your families the very best for now and
the future.
The Scheme to Support National Organisations
(SSNO) funding was extended by Minister Alan
Kelly on 25th May to June 2016. This resulted from
extensive advocacy from ASI who worked tirelessly
with The Disability Federation of Ireland and the
Neurological Alliance of Ireland to highlight the
importance of the funding for disability organisations.
Gerry Martin, Chief Executive Officer
Special visit to Bessboro
The Lord Mayor of Cork, Councillor Mary Shields, paid a
courtesy visit to view the purpose-built facilities at Bessboro
Day Care Centre on 10th June 2015.
Meeting some of the Cork City Branch Committee, staff and
clients, Councillor Shields was treated to music and dancing
with “The Purple Pops”, the performance group formed by the
centre’s clients. L-R: Tess Hogan (Committee), Noirin Walsh (Chair),
Lord Mayor of Cork, Councillor Mary Shields,
Deirdre Healy (Committee), Helen Barrow
(Nurse-Manager, Bessboro Day Care Centre).
The Lord Mayor of Cork also visited the Arts Therapy room in
session and the gardens which have been recently rejuvenated
by volunteers from Novartis and VM Ware.
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The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
Curlew Road in Drimnagh
Congratulations to Curlew Road Day Care Centre
in Drimnagh, Dublin 12 who were awarded the top
Gold Star Award for their local area. The award was
presented by the Lord Mayor of Dublin, Christy Burke to
Noel Quilantang & John Kenny.
L-R: John Kenny, Christy Burke (Lord Mayor) & Noel Quilantang
Forget the Stigma Campaign
On June 3rd, we launched a public
awareness campaign called ‘Forget the
Stigma’. The campaign sought to rally the
public to sign up to a simple, three-step
challenge to fight the stigma of dementia
called ‘Learn, Listen and Link,’ via our
website. The challenge asked people
to agree to learn the facts of dementia,
thereby debunking the myths, listen to and
empathise with people with dementia and
link up with them, not isolate them.
Our hope was the ‘Forget the Stigma’
campaign, which featured real people;
Mums, Dads, sisters and brothers, would
encourage a re-examination of the value
placed on people with dementia and their
carers by both policy-makers and the
general public.
We hoped by placing people with dementia
at the centre of this campaign and telling
their stories, the public would understand
that dementia is not a condition exclusively
of older age, and it affects each person
in different ways. The campaign was
a resounding success with more than
4,050 signatures, which far exceeded
our expectations. The campaign is the
largest social movement for dementia in
Ireland to date. We hope this campaign will
demonstrate just how valuable a contribution
people with dementia can make to society.
L-R: Kathy Ryan, Sean Donal O’Shea & Helen Rochford
Brennan, ASI’s wonderful advocates who fronted our
Forget The Stigma Campaign.
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The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
Alzheimer’s Autumn Draw 2015
Do you fancy driving away in a brand new car, going on a shopping
spree with €5,000 cash, or being in with a chance to win a luxury
holiday?
The Alzheimer Society of Ireland’s inaugural Autumn Draw will
launch this August. The top prize is a silver Suzuki. ASI will have
volunteers selling tickets in over 40 locations around Ireland during
August, September & October.
Tickets will also be available nationwide in all ASI Services and from
National Office in Dublin. Tickets are €5 each or a book of 5 for €20
and will be available from 1st August 2015. The draw will take place
at the end of October. To be in with your chance to win, please
contact the Fundraising Team on 01-2073833. Remember all money
raised locally will go towards supporting local services.
tea day
Thank you to everyone for your fantastic support of Tea Day
this year where we saw a welcome increase in the number
of people hosting Tea Day’s around the country. Funds will
be coming in over the next few months so please keep an
eye out for the final tally for this year’s campaign in our next
issue of The Voice. We are so grateful for your continued
support as always, and please remember all money raised
from your Tea Day will go towards supporting local services
in your area. Don’t forget to include your giro number or
name as reference when lodging your Tea Day funds. If you
have any queries please contact Orla on 01-2073833.
Mini marathon
walk the camino
Although the June Bank Holiday Monday was one of
the wettest days we could have imagined, it did not
dampen the spirits of the ASI Mini Marathon team who
took part to raise money for services all across the
country. This year ASI had over 600 ladies competing.
Our after event in Dandelion was a huge success
and funds are coming in steadily. Thank you to all of
the wonderful ladies who braved the wet and windy
weather to take part on behalf of ASI.
It’s not too late to sign up for this amazing experience
and join 20 other walkers along the route from Sarria
to Santiago. ASI will have a team of walkers setting
off on this journey from 19th - 26th September. To
request your information pack contact Clodagh on
01-2073815 or visit www.alzheimer.ie.
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The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
The Azure Programme
Artists, educators and charities are collaborating to help
make galleries dementia-friendly spaces to encourage
more engagement with people with dementia.
Based on the innovative Meet Me at MoMA (Museum
of Modern Art) programme in New York, the Azure
programme is being rolled out in Ireland by Age &
Opportunity (A&O), The Alzheimer Society of Ireland
(ASI), the Butler Gallery in Kilkenny and Irish Museum of
Modern Art (IMMA).
dementia and a member of ASI’s Irish Dementia
Working Group.
The course looked at how arts educators can become
more dementia friendly and learn how to respond to
unexpected issues that can arise when working with
people with dementia.
Thirty people participated in the training course from
around the country representing the National Gallery, the
Chester Beatty Library, the Hunt Museum in Limerick,
West Cork Arts Centre, Galway Arts Centre and the Arts
Council NI among others. They will bring this learning
back to their galleries and arts centres around the
country.
The aim of Azure is to deliver specialised training to
arts facilitators on making art accessible to people with
dementia and their carers in Ireland’s galleries and arts
centres. Meet Me at MoMA’s trained educators facilitate
groups of people with dementia to engage with selected
artworks for observation and discussion.
ASI through its small awards fund will support
six galleries / arts centres to implement the Azure
programme at a local level.
The Azure training was held at IMMA from the 26th to
28th of May as part of the Bealtaine Arts Festival.
Laurel Humble, an educator from MoMA travelled to
Ireland, to share her expertise with Azure facilitators
alongside Bairbre-Ann Harkin of the Butler Gallery in
Kilkenny. They were joined by Marie Brett and Kevin
Shanahan, who deliver arts projects to people with
dementia and Ronan Smith, Line Manager at the Gaiety
Theatre and actor. Ronan was diagnosed with dementia
last year and is a strong advocate for people with
Back L-R, Ann Cosgrove, Catherine Folan, Maura Fahy, Bernie O Grady,
Sheila O Grady and Maureen Mannion. Front L-R, Patti O Connor, Mary
Thank
you to
Riverdale
Home
Residents of Blackwater, Ardnacrusha, Co. Clare who raised €991
Hogan,
Des
Mulligan,Nursing
Honorette
McNamara.
for ASI over two years.
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The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
staff development - tutor profile
In each issue of The Voice we will profile our brilliant ASI
staff, who are also tutors delivering a range of courses
across ASI. In this issue, Jayne O’Sullivan and Sheila
Gallagher reflect on their journey to becoming tutors and
how they have found the experience of tutoring family
carers and ASI staff.
Jayne
confidence each week, in their own skills and ability and
they reflected this in their participation and feedback. It
was a wonderful sharing experience for all who attended
and once again we felt privileged and humbled to be
working with such amazing people.
Fergus kindly came to Wexford for the presentation of
Certificates, which was really appreciated by the carers,
Sheila and I. We had a great day and the participants
loved meeting the person who had put the training
together. Such was the popularity of the Insights into
Dementia Course we plan to hold another one in Wexford
in the autumn.
Jayne: I have worked in ASI for the last
7 years. I was delighted when I was
approached with the opportunity to
become a training provider. I had already
completed the Train the Trainer FETAC
level 6 course some years ago and it
was great to finally put this training to
good use.
Together with Sheila, I delivered the Dementia Awareness
Training to staff in November 2014. This two-day course
is part of the National Elevator Programme. It was warmly
received by our care staff.
Sheila and I also delivered the Insights into Dementia
Course for family carers in January/February 2015. We
have found that delivering these courses enhanced our
own knowledge around dementia, but also the positive
effect it has had on those who participated in the training.
Sheila
Sheila: I have over 20 years’ experience
working with people with dementia and I
am passionate about supporting people
with dementia and their carers. All of us
working for The Alzheimer Society are
so privileged to meet such wonderful
people every day.
Fergus Timmons, ASI Training Manager
presenting John O’Horan with his Certificate.
My training has been vast over the years, but more
recently I have completed Train the Trainer FETAC level
6, and achieved a First Class Honours Degree in Applied
Social Studies Professional Practice. I have become
interested in training delivery of late, and was delighted
when I was approached by our Training Manager, Fergus
Timmons to become a trainer for The Alzheimer Society.
Jayne and I were delighted with the two courses and
the response we received from participants. We worked
brilliantly together both enhancing each other’s styles. The
feedback from those who attended was wonderful. During
the Insights Course, we could see the participants grow in
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The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
ASI SERVICES
Health & Safety Audits
HElpline
Results from recent Health & Safety external
audits demonstrate that ASI locations are
currently 84% compliant which is relatively high.
More insight results show there are key areas that
need more work including: staff training/induction
(41 locations), premises/equipment Health &
Safety issues (31 locations) and practice/staff
awareness (28 locations).
Calls and queries to our Helpline in 2015 have exceeded
our 2014 figures month on month. ASI received 2,015
calls at the end of May, a 13% increase on 2014. As
part of our ongoing efforts to increase the quality of this
service, we have commenced preparing this service
to apply for the International Helpline Quality Standard
Mark. It is envisaged that we will be in a position to
apply for this by the end of the year. The Peggy Mangan
family have donated €50k for the use of a new mobile
information bus. This has been put out to tender and should
be in operation within a six month period.
Client survey
The first bi-annual client satisfaction survey was
undertaken across ASI services engaging a random
sample of 200 clients/carers (25% response rate). The
survey found 70% were ‘very satisfied’ with general
services while a further 28% were ‘satisfied’. Overall 80%
were ‘very satisfied’ with staff care. The next step will be
to build in focus group research to get a better insight into
possible service improvements.
HsE Funding
Operations continue to negotiate with HSE at local
level to secure additional funding for sustaining
our services at their current level. To date we have
experienced success in five counties.
News from around the country
Well done to the crew in Fore Coffee Shop, Fore,
Co. Westmeath for raising €1,177.69 for their Tea Day.
Tea Day cheque presentation of €1,560 at St Martha’s
Nursing home in Bansha, Co. Tipperary. A big thank you
to everyone involved for all your support.
Emma Harrison HR Director with Lease Plan Services
(l) & Clodagh Swords Community Fundraiser with ASI.
L-R: Bibi & Jane O’ Reilly, Jean & Orla Fox, and
Sean Comaskey presenting a Tea Day cheque to
Samantha Scally of the Westmeath Branch.
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The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
news From around the country
A Tea Day party held in Ballymacelligott, Co. Kerry
in May which raised €1,968.39 for the Home Care
Service in North Kerry.
Thank you to Ann Shine and family for raising €3,512.82
for ASI’s Adare Branch from an Easter raffle held in March.
Well done to Mary Gorman, a volunteer with ASI who
held two Tea Day events in Tullamore, Co. Offaly and
raised over €1,000.
Thank you to Matthew Gilsenan who donated €5,000
to ASI from the proceeds from an annual concert held
last December. Special thanks to Trim Floral Art Club
for their help with this fantastic fundraiser.
L-R: Margaret Maher, Day Care Manager & Mary
Gorman, volunteer.
L-R: P V Dunne, Maura Howley (ASI Meath Home
Care) Matthew Gilsenan & Patricia McDonnell.
Very well done to Ann Thompson (left) & Christine
Harnett, both carers from Galway who completed the
VHI Women’s Mini Marathon on June 1st.
Thanks to the staff of Aras Mhathair Phoil Nursing
Home who organised a Tea Day for Castlerea Day
Care and presented Marion Murphy, Nurse Manager
with a cheque for €130.
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The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
news From around the country
Well done to all the ladies who participated in the VHI Women’s Mini Marathon on Monday 1st June
2015 in aid of the Drogheda Day Care Centre’s Building Fund.
A Declan Nerney Fundraiser was held in the
Diamond Coast Hotel, Enniscrone, Co. Sligo on 31st
May 2015 organised by Mary & Carmel Gordon and
Raymond Beglane. The Sligo Branch of ASI is very
grateful for their generosity.
Castlerea Day Care hosting their Alzheimer’s Tea Day
in May.
L-R: Breda McHugh, Dympna O’ Hara, Tina O’Donnell,
Mary McManus, Declan Nerney, Majella O’Donnell and
Maureen Hynes.
ASI staff attending a tea day at Bungalow 1, Kilcornan,
Clarinbridge, Co. Galway in May.
Well done to STAG (South Tipperary Arts Group) who
visited Le Cairde Day Care Centre in Clonmel, Co.
Tipperary and painted a beautiful mural. Thank you to
Maureen and Frances for all their hard work.
L-R: Sheila Harty, Maureen Mannion, Trina O’Donoghue
& Marion O’Flaherty.
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The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
news From around the country
Well done to the crew in Mitchelstown, Co. Cork for
raising €1,830 for their Tea Day in Shapers Salon.
Staff of the Village Day Care Centre Kilkenny raised
€558.50 at their Tea Day on the 7th May 2015.
L-R: Mary Nolan, Michael Condon, Bernie Nolan, Mary
Dunleavy & Gertie Condon.
Martin McDonnell held a tea morning at his home in
Dromore West, Co. Sligo on 7th May and raised €865.
The staff of Castlerea Day Care were presented with
a cheque for €2,995 from Pulse Health & Fitness
and Cahill’s Supervalu in Castlerea who organised
a fundraising Fun Run in March.
L-R: Martin McDonnell presenting his cheque to
Majella O’Donnell, Dementia Adviser.
Emma Nugent arranged a pampering evening on 4th
April presents a cheque for €825 to Catherine Bartels
and Bridget Crosse of Clonmel South Tipperary Branch.
In a scene reminiscent of “60 Minute Makeover”, Novartis
staff painted everything in sight at Bessboro Day Care
Centre in June. Thank you for your support and help.
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The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
News from around the country
Thank you to actress Rose Henderson of Fair City
who attended the Blackrock Social Club to entertain
members on 17th June with her one woman show.
A Tea Day was held in the Carrickmacross Workhouse
arranged by Maeve Montgomery, Dementia Adviser and
raised €311.45.
Cheque presentation from Clonmel Resource Centre for
€395 for a Tea Day held in May.
Rose Henderson with her parents who attend Blackrock
Social Club in Dublin.
Amber, Liz and Tara Galwey from Castleisland, Co. Kerry
at their Tea Day where they raised €2,786 in support of
Liz’s mom Peggy Teahan.
L-R: Naomi, Catherine and Gerard Bartels. 11
The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015
WICKLOW
The North Dublin Social Clubs went on tour in Wicklow in June visiting Avoca and Glendalough and dined in the
Mountain Heather Restaurant. A great day was had by all.
CORK
A Tea Day was held in Seamus Healy’s office in May which
raised €700 for local services. Our wonderful advocate
Kathy Ryan attended.
The Irish Patchwork Quilt Society has chosen
ASI as its charity partner for 2015 and is donating
home-made fidget quilts to Day Care Centres
throughout the West of Ireland.
L-R: Maureen Mannion of ASI and Annette Lohan of the
Irish Patchwork Quilt Society at their exhibition in NUIG
during National Quilt Week.
Tea Day was held by Joe Peyton which raised €1,000 at
The Hut, Gurranabraher, Cork.
Bessboro’s “Purple Pops” provided the entertainment.
The Voice was edited by Morag O Connor, Communications Executive, The Alzheimer Society of Ireland.
Address: The Alzheimer Society of Ireland, National Office, Temple Road, Blackrock, Co. Dublin.
Phone: 01-207 3800 Fax: 01-210 3772 E-mail: [email protected] Website: www.alzheimer.ie
Next Issue: Deadline for Copy: November 3rd 2015.
The comments and views expressed in this issue are often personal and do not necessarily represent the position of The Alzheimer Society of Ireland.
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