Course Handout - Ohio Speech-Language
Transcription
Course Handout - Ohio Speech-Language
2/17/2015 Pediatric Swallowing: The Basic Ingredients For Success Colleen Vincent MS, CCC‐SLP Nationwide Children's Hospital [email protected] Agenda • Development of swallowing • Anatomical differences between pediatrics and adults • Common diagnoses for pediatric swallowing concerns • Bedside Swallow vs. Video Swallow Studies • Fiberoptic Endoscopic Evaluation of Swallowing (FEES) • Therapy for Swallowing • Passy Muir Valve for Swallowing • Swallowing Scales Swallowing “Swallowing is one of the most complex functions that humans carry out with several anatomic areas involved for voluntary and involuntary components. Neuromuscular coordination depends on the central nervous system, brain stem, afferent sensory input, motor responses and enteric nervous system.” (Arvedson, 2006) 1 2/17/2015 Prevalence of Dysphagia • 25-45% in typically developing children • 33-80% in children with developmental delay • Dysphagia can lead to: • aspiration • pneumonia • failure to thrive • malnutrition Gosa, et al, 2011 Fetal Development • 9-12 weeks (fetus) • Completion of facial, oral and pharyngeal structures • Pharyngeal swallow observed at 10-11 weeks • 17-20 weeks • True suckling response with forward/backward motion of tongue • 21-25 weeks • Suckling response continues to mature Dailey, 2012 Fetal Development • 26‐29 weeks • Difficulty breathing air • Suckle not mature • 34 weeks • Some “normal” infants born at 34 weeks can feed well enough to grow • More rhythmic suck/swallow/breathe Dailey, 2012 2 2/17/2015 Fetal Development • 30‐34 weeks • Potential for feeding begins • 38‐42 weeks • Considered “normal” and should be able to feed well enough to grow Dailey, 2012 Pediatric Anatomy • Jaw is small and retracted creating a small oral space • Tongue fills the oral space and is limited in movement • Hard palate is short and only slightly arched • Soft palate and epiglottis are in approximation • Sucking pads that consist of fatty tissue within the muscles of the infant’s cheeks provide the infant with stability in the oral system • Eustachian tubes lie at the floor of the nasal cavity near the junction of the hard and soft palates • Early tongue movement is described as anterior-posterior Arvedson, 2006 Pediatric Anatomy • Obligatory nose breathers-the mouth is filled with the tongue; soft palate and epiglottis are touching making the flow of air more efficient via the nose • Epiglottis and soft palate remain in direct contact until approximately 3-4 months of age providing additional protection against food randomly falling over the back of the tongue and in to the airway • Larynx is high and fully protected when it is elevated during the swallow • Hyoid bone is cartilaginous Evans-Morris & Dunn-Klein, 2000 3 2/17/2015 Pediatric Anatomy • Changes over time • Mouth breathing in addition to nose breathing • Laryngeal vestibule enlarges • Anterior excursion of larynx primarily vs. elevation for adults • Structures involved in airway protection: • Epiglottis • Aryteniod cartilages • False and true vocal folds Arvedson, 2006 Pediatric Anatomy • Larynx lowers in the throat as the neck elongates • Epiglottis and hyoid also descend • Airway is less protected – this challenges the coordination of swallowing and breathing and helps encourage their reciprocity • Soft palate distances itself from the tongue and epiglottis • Pharyngeal coordination problems that may have been a problem all along may now be apparent Arvedson, 2006 Pediatric Anatomy • Vocal cords have a lower attachment anteriorly whereas adult VC are attached perpendicular to the trachea – infants’ VC appear angled • ** Swallowing initiates in the vallecular space ** • Milk/fluid collects in valleculae during suckling burst and then is swallowed • In mature suck/swallow pattern, swallow should be initiated as soon as the milk reaches the valleculae – there should be no hesitation or pooling Ramirez, 2009 4 2/17/2015 Pediatric Anatomy • Continued gradual changes in anatomy • As the child grows, triggering the pharyngeal swallow occurs further up the tongue • Initiation moves up from the valleculae to the base of the tongue • Liquid can collect at faucial arches or in valleculae before a pharyngeal swallow is initiated. (Weckmueller, Easterling & Arvdeson, 2011) • Gradually reaches the back of the tongue just past the faucial arches as in adult swallows by the age of 5 Ramirez, 2009 Pediatric Anatomy: 3+ years • True epiglottic inversion does not emerge until the age of 3 & becomes more complete & consistent by the age of 5 • The base of the tongue, the hyoid and the larynx descend during the first 5 years of life • Consistent full epiglottic inversion over airway should be noted by 5 years • Anatomy & physiology of swallow is the same as for adults, just on a smaller scale, by 5 years Ramirez, 2009 Anatomical Differences Delzell, et al., 1999 5 2/17/2015 Neuroanatomy • Recurrent laryngeal nerve (RLN) is primary innervation of muscles for sphinter closure of upper airway • Innvervation of laryngeal protective and respiratory functions are location in brain stem • Sensory innvervation to supraglottic and glottic areas is provided by superior laryngeal nerve-which is a branch of CN 10 Arvedson, 2006 Neuroanatomy • Unilateral or bilaterial vocal cord paralysis is a factor in pediatric population following various cardiac surgeries likely to cause injury to RLN (Khariwala, Lee & Koltai, 2005) • Most densely innervated area of larynx is the posterior part of true vocal cords and superior surface of epiglottis (Sasaki & Isaacson,1988) Stages of Swallowing • Oral Preparatory Phase (bolus formation phase) • Biting, chewing, preparing and organizing bolus • Oral Phase • Actively propel bolus to back of the mouth • Breaking food down to be easily swallowed • Food collected into a bolus and held until it moves toward pharynx Evans-Morris & Dunn-Klein, 2000 6 2/17/2015 Stages of Swallowing • Pharyngeal Phase • Valving the nasal and laryngeal openings • Movement of bolus through the pharynx • Soft palate elevates to close nasal cavity • Changing pressures and peristalsis transport bolus through pharynx • Opening of cricopharyngeal segment to allow bolus into esophagus Evans-Morris & Dunn-Klein, 2000 Stages of Swallowing • Esophogeal Phase • Movement of bolus through the esophagus and into stomach • Coordinated effort of opening and closing of the UES and LES • LES should then close to prevent upward movement of stomach contents Evans-Morris & Dunn-Klein, 2000 Common Referrals for Swallowing Evaluations • Apnea, bradycardia with feeds • Coughing, choking with feeds • Poor weight gain • Neurologic diagnoses for infants (CP, syndromes, stroke) • Chronic congestion • Recurrent pneumonia • Prolonged intubation 7 2/17/2015 Common Referrals for Swallowing Evaluations • Anatomical issues • TEF (tracheoesophageal fistula) • Laryngeal cleft • Vocal cord paralysis/paresis • Laryngo/tracheomalacia (weak/floppy) • Neurologic issues • Acute changes in status-TBI, GBS Bedside Swallow Evaluation • Bedside Swallow/Feeding Evaluation • Can be a change in status or a chronic issue related or unrelated to admission • Sometimes challenging to find out premorbid status • Checking with nursing for NPO status for testing • Paying close attention to other medical history – are you concerned that this child is aspirating? • If concerned for aspiration, can recommend VSS Oral-Motor/Feeding Evaluation • Gagging: a regurgitate spasm in the throat, as from revulsion to a food or smell or in reflexive response to an introduced object • Feeding issues associated with a variety of syndromes/conditions (i.e. craniofacial disorders, Trach/Vent, etc.) • Trouble with advancement of diet: transitioning textures (i.e. changing from smooth purees to chunky purees to soft foods to table foods, etc.) • Trouble transitioning from bottle to sip cup 8 2/17/2015 Oral-Motor/Feeding Evaluation • Food aversions/behavioral feeding problems • Oral motor weakness and/or oral motor coordination issues (i.e. difficulties with oral motor control of bolus) • Trouble with oral skills during supplemental bottle feeding • Patient has never eaten by mouth Pros/Cons of Bedside Evaluation • Pros • Non-invasive • No radiation • Can be seen in most ideal feeding position (“like home”) • Can evaluate breast feeding infants or with bottle using breast milk • Can use more preferable foods/drinks • Less expensive • More flexibility (with scheduling, positioning, etc.) Pros/Cons of Bedside Evaluation • Cons • Silent aspiration? • What if the child sounds congested at rest? • Have to make your “best guess” 9 2/17/2015 Video Swallow Study Checklist • Gagging/choking on solids after foods have been cleared from mouth (feeling like foods are stuck “in throat”) • Choking/coughing while drinking liquids • Sudden increase in frequency of colds/bronchitis/pneumonia/respiratory infections • Prior history of aspiration/swallow dysfunction • Significant medical history – Patient with Trach/vent, craniofacial disorder, TEF, etc. would need a VSS prior to beginning therapy to determine safety of swallow Videofluoroscopic Swallow Study (VSS) • At NCH, performed with radiologist, SLP and OT • Performed in fluoroscopy- video x-ray • Barium presented in various liquid consistencies, purees and solids • Barium presented via bottle, cup, spoon, straw, syringe as appropriate for the child • Young children sit in supported chair similar to car seat (Tumbleform) • Parents are present and may be the “feeder” • Usually performed in lateral position but child can be viewed in anterior-posterior position or side lying Primary goals of VSS • Delineate physiology & function of swallowing • Not to determine whether a patient aspirates • Make modifications during the examination that can help determine what food & liquid the child can eat & drink • Make specific guidelines for meal time effectiveness & safety, as well as for therapy strategies to meet nutrition & hydration needs & maintain pulmonary stability 10 2/17/2015 Pros of VSS • Pros • Document swallowing characteristics • Identification of (silent) aspiration • Identification of appropriate/safe consistencies • Identification of risk factors for aspiration • Asymmetries • Changes in swallowing patterns over time • Successful/unsuccessful use of compensatory strategies Cons of VSS • Cons • “snapshot” of swallow • radiation exposure • “scary” environment • Limited data for infants/children re: what is normal? • Transferring difficult patients • Traveling from floor for those that need nursing, RT Infants & VSS • Strive for assessment in “typical” feeding position • Semi-reclined, side lying, upright • Are usually cooperative • NPO 2 hours before study – make them hungry! • Use of intermittent fluoro to allow fatigue • Modifications • Presentation • Position • Viscosity or texture Arvedson, 2006 11 2/17/2015 Infants and VSS • No true bolus formation process for nipple feeding • Once infants and children advance to spoon feeding & cup drinking, the bolus formation/oral preparation phase is more similar to the adult process • Efficient “normal” infants taking nipple feeds • 2-7 sucks per swallow is within normal range • Infants produce a number of suck & swallow sequences before they pause to take a breath NIPPLE CONFUSION!!??!! 12 2/17/2015 Nipple Flow Rate • Disposable nipples appeared to have more variability in flow rate measurements between different disposable units as well as between trials using the same unit • Several commercially available nipples have slower flow rates than disposable nipple units • Commercially available nipples marketed as “slow flow” have a wide variety of flow rates • First Years Breast flow appears to have the slowest flow Jackman, 2013 Nipple Flow Rate • Many nipples marketed as “slow flow” demonstrated double or triple the flow rate of others • Many disposable nipples appear to have poor consistency in flow rate from one use to the next • For high-risk infants needing the slowest flow, consider: Playtex Ventaire, Similac slow flow, and Dr. Brown premature Jackman, 2013 Nipple Flow Rates Jackman, 2013 13 2/17/2015 Side Lying • Reason for using side lying technique is that lying down will hold residual bolus material to the pharyngeal walls instead of allowing it to drop into the airway, which may more readily occur as a result of gravity in an upright position. • Tilting the body to the non-paralyzed side (side lying) makes it easier for the force of gravity to bring a food bolus downward and pass through the non-paralyzed side. (Kagaya, Inamoto, Okada, & et al., 2011) Side Lying with Infants Lau, 2013 • Very low birth weight infants were randomized to being fed in the customary semi-reclined (control), upright, or side lying position • The primary outcome was days from start to independent oral feeding • Infants fed in the upright and side lying groups attained independent oral feeding within the same number of days as control counterparts. There was no difference in the maturation of their oral feeding skills. Side Lying • Unilateral or bilaterial vocal cord paralysis is a factor in pediatric population following various cardiac surgeries likely to case injury to RLN (Khariwala, Lee & Koltai, 2005) • Right sidelying down-gravity may assist with passive closure of left vocal cord to midline • Can improve airway protection for infants who have this issue 14 2/17/2015 Breastfeeding & Breast milk • Must take into consideration with positioning for swallow studies • If infant has been solely breastfed, must take into consideration that they have never attempted feeding with a nipple and this may alter results • No artificial nipple duplicates a breast nipple • Viscosity of breast milk is different from infant formulas • Breast milk is generally thinner than formula Arvedson, 2006 Breast milk • Thickening breast milk • Breast milk breaks down infant cereal & powdered thickeners • NCH policy is no artificial thickeners for those under 1 yo • We discuss results of VSS with physician and they determine appropriate plan for this patient Breast milk • Almeida, & et al., 2011 • Determine viscosity of breast milk and infant formula when thickened with starched based thickener • Infant formula thickened and was significantly thicker after 1 hour • Human milk had decreased viscosity over time within 20 minutes • Reduction in viscosity of breast milk is associated with presence of amylase enzyme. Promotes hydrolysis of starch in thickener. • Importance of concentration of thickener and time that feeds are given after thickening 15 2/17/2015 Simply Thick • Thickens breast milk, formulas and other liquids to nectar and honey consistencies. • SimplyThick® thickener is NOT intended for use with preterm or infants under 12 months of age due to risk of NEC. • Ingredients • Water • Xanthan gum, • Sodium acid sulfate, and • Potassium sorbate www.simplytyhick.com Gelmix Thickener • USDA organic thickener for breast milk, formula and other liquids • Thickens breast milk, formulas and other liquids to nectar and honey consistencies • Recommended for those with reflux and dysphagia • Ingredients: • Organic Tapioca Maltodextrin • Organic Carob Bean Gum • Calcium Carbonate www.gelmix.com Gelmix • Side Effects • Gassiness may occur for first 2 weeks, especially for those under 3 months of age • Stools with mild mucous appearance • Contraindications • Not for use with infants under 42 weeks gestational age • Not for use with infants under 6 lbs • Very few cases of allergies noted www.gelmix.com 16 2/17/2015 Gelmix • Mixing Instructions • Gelmix dissolves and thickens best in warm liquids • Warm desired amount of liquid 100-120 degrees F • Sprinkle in gelmix and mix well until dissolved • Wait 5 minutes www.gelmix.com NEC • Necrotizing enterocolitis • A disease of the bowel (intestine) of newborn infants • Exact cause is not known • Usually occurs in infants who are premature and have low birth weight • The lining of the bowel cannot function • The lining of the bowel is necessary for the baby to absorb food normally NEC • “Affects 7% of premature infants with a birth weight <1500 g” • Assosciated with significant morbidity and mortality • Often occurs after initiation of enteral feeds during first month of life • Usually involves ileum Woods, Oliver, Lewis & Yang, 2012 17 2/17/2015 NEC • 3 infants in case presentation • Presented with NEC in 2nd month of life • Following ingestion of feeds thickened with Simply Thick • Area of involvement was colon • Xantham gum stimulates the gut and triggers inflammatory process Woods, Oliver, Lewis & Yang, 2012 Carob Gum and NEC • Clarke & Robinson, 2004 • Extremely low birth weight infants have a risk of developing (NEC) • Report of two infants who developed fatal NEC • Concern that carob gum may have contributed to NEC Children in Transition Feeding Stages & VSS • Approximately 6 months to 3 years • Toddlers may be slightly less cooperative… • Still important to have them hungry! • Want to use the feeding method most used at home 18 2/17/2015 Modifications for Young Children/Toddlers • Texture variations • Consider first item especially when fearing behavioral concerns – starting with most concerning consistency vs. starting with something more successful • Using items that require chewing – challenging to mix w/ barium without creating a mixed texture; use of barium cookies; allow us to see ability to chew and swallow solid bolus • Changing Presentation Modifications for Young Children/Toddlers • Posture/position changes • Important especially for neurologically impaired • Mimic most common feeding position • Neck hyperextension CUP CONFUSION!!??!! 19 2/17/2015 Changing Presentation – Cup Choices • Cups for kids with motoric difficulties • Nosey cup • Honey bear cup • Soft spout– can be used if kids don’t have a good suck, but instead more of a “munch” to transition to sippy cup • Valve versus no-valve • Valve = no spill, slower flow, must suck • No valve = spills, faster flow, don’t have to suck much or at all • Other options: hard/soft spout sippy cup, straw cup (or regular straw), sports bottle, open cup Older Children (3 years and up) & VSS • Protocols & modifications more similar to those used with adults than with infants & young children • Posture/positional changes: must consider cognitive ability of the child/adolescent to be able to follow these modifications • Consider therapeutic trials or feeding only in therapy as a beginning to oral feeding (or with a difficult consistency) Pediatric Considerations • Consecutive swallows/“Chugging” • Would prefer to be able to evaluate after several consecutive swallows • Is there breakdown? Disorganization? Loss of control of bolus? Residue? • Neck hyperextension • Common when kids self-feed w/ bottle or sippy cup 20 2/17/2015 Aspiration • Occurs when food travels into the airway instead of into the esophagus • Often suspected by observation of apnea during feeding, coughing, wet voice, throat clearing, or diagnosis of pneumonia • Aspiration may be seen on different textures so a child could be perfectly safe eating purees and solids but aspirate on thin liquids • If aspiration is suspected - a VSS or FEES should be recommended Silent Aspiration • Arvedson, 1994 • Study included children with CP, neuromuscular disabilities. • Aspiration was observed in 48 (26%) of 186 children, primarily on liquid before or during swallows. • Aspiration was trace (less than 10% of a bolus) and silent in 94%. Silent Aspiration • Newmann, et. al, 2001 • More than half of the infants (22 of 43) who were referred for dysphagia experienced laryngeal penetration, aspiration, or nasopharyngeal backflow. • The majority did not demonstrate these issues on first few swallows, but with additional swallows. • Eight of the 9 infants in this study did not cough or clear their airway in response to aspiration (silent aspiration). 21 2/17/2015 Silent Aspiration • Rule out silent aspiration as it is more common in infants and children • Predictors of aspiration Include: • Severity of delay initiation of swallow • Penetration to vocal cords • Residuals following swallow • Increased pharyngeal incoordination overtime • Important to continue to evaluate or time and with increased volume • Want to identify if swallow deteriorates with time and increased volume Ramirez, 2009 Cough • Cough is primary protective function of larynx during swallowing • Provide back up protection when primary protection fails • Mediated in the brainstem • Triggered by CN 10 in larynx • Young infants often do not cough in response to aspiration, especially in first 1-2 months Arvedson, 2006 Cough • “Only 25% of preterm infants and 25-50% of term infants have a well functioning cough reflex.” (Loughlin & Lefton-Greif, 1994) • “By 1 month, 90% of children have well developed cough reflex (Holinger & Sanders, 1991) 22 2/17/2015 Laryngeal Penetration • Delzell, et al., 1999 • Normal group of 34 patients with no evidence of swallowing dysfunction • 97% of normal patients had laryngeal penetration • None of the patients aspirated • Isolated laryngeal penetration is normal in infants and children with no signs of dysphagia Laryngeal Penetration • Freidman & Bolders Frazier, 2000 • Incidence of laryngeal penetration in 125 patients from 7 days-19 years • 60% demonstrated laryngeal penetration • 31% demonstrated deep laryngeal penetration • 85% of those with deep laryngeal penetration aspirated • Strong correlation with deep laryngeal penetration and aspiration Laryngeal Penetration • Freidman & Bolders Frazier, 2000 • Monitor laryngeal penetration, specifically deep laryngeal penetration • Children with deep laryngeal penetration typically aspirate further into a feeding 23 2/17/2015 Evaluation of Results • What can we modify before we must move to a more restricted diet? • Must take into account medical dx, pulmonary status, neurologic status, potential for global developmental gains • Results offered to parents immediately following study – with caveat that, ultimately, decisions regarding thickening are up to their physician Evaluation of Results • No evidence to suggest that trace amounts of aspiration is a reason to make someone a non oral feeder • Also no evidence to suggest how much aspiration of what liquid or food can be tolerated until patient begins to have chronic problems • Diagnoses, medical status, pulmonary status, neurological status must all be considered • Limited data for young children Arvedson, 2006 Fiberoptic Endoscopic Evaluation of Swallow • Fiberoptic scope is passed through nose to view laryngeal area • Performed with Otolaryngologist and SLP at NCH • Food is colored with dye (usually green) and given to child • Variety of liquid and consistencies can be given • Parents can hold child or assist with giving foods 24 2/17/2015 FEES Indications for FEES • Transportation to Radiology is risky: medically fragile • Positioning is problematic • Neck halo, skull flap, drain, obese • Concern about radiation • Does not take up nursing/RT times • Fluoroscopy not available • Transportation is problematic: costly/stressful Langmore, 2013 Indications for FEES: Clinical Reasons • Want to visualize larynx • Voice suggests laryngeal involvement • Anatomical changes: laryngeal trauma • Post‐intubation • Post‐surgery ‐‐ neurologic damage • Visualize VP competence Langmore, 2013 25 2/17/2015 Pros of FEES • Pros • No radiation exposure • Easily repeated under a variety of clinical settings • Real food and liquid are used • Portable equipment • No need for barium • Can evaluate kids when they are too big for VSS chair (>250 lbs) Langmore, 2013 Cons of FEES • Cons • Need cooperation of child • Limited view during actual swallow due to white out, especially for infants • Invasive • May tells us that aspiration has occurred but may not tell us why Langmore, 2013 Referrals • ENT • Pulmonary or GI • Psychology • Interdisciplinary Feeding Clinic – for a child with needs from multiple disciplines (developmental pediatrician, dietician, SLP, OT, Psychology) • Speech or OT for feeding therapy 26 2/17/2015 Therapy for Swallowing • Difficult due to ages/cognitive abilities of the population • Primary focus on modifications to diet, manner of feeding (position, changing nipples/cups, safe feeding techniques) • May have a few sessions to be sure families are comfortable with recommendations • Can provide therapy for patients who have more oralbased issues Therapy for Swallowing • For older kids, therapy is similar to that for adults • Compensatory strategies • Swallowing exercises • Thickening • Thermal stim • Vital Stim Compensatory Strategies • Chin Tuck • Delay in triggering swallow, reduced BOT retraction • Side lying • Reduced pharyngeal contraction, vocal cord paresis • Head turn • Unilateral pharyngeal paresis/residue on one side of pharynx • Dry Swallows • Decreased pharyngeal constriction/residue • Alternating liquids/solids • Decreased pharyngeal constriction/residue Logemann, 1998 27 2/17/2015 Vital Stim • Use is very controversial • Limited data to support use in pediatric population • We are not currently providing this at NCH Vital Stim Christiaanse,et al, 2011 Neuromuscular Electrical Stimulation is No More Effective Than Usual Care for the Treatment of Primary Dysphagia in Children • Retrospective analysis of change in Functional Oral Intake Scale (FOIS) level derived from videofluoroscopic swallowing studies performed before and after NME • Conclusion: NMES treatment of anterior neck muscles in a heterogeneous group of pediatric patients with dysphagia did not improve the swallow function more than that seen in patients who did not receive NMES treatment. Thickening with Cereal Children Under 12 months with Formula • Nectar Thick • 1.5 tsp of dry infant/baby cereal (for EACH ounce of formula) Examples of the recipe 4 ounce bottle = 6 teaspoons 8 ounce bottle = 12 teaspoons 28 2/17/2015 Thickening with Cereal • Honey Thick • 2.5 teaspoons of dry infant/baby cereal for EACH ounce of formula Examples of the recipe 4 ounce bottle = 10 teaspoons Thickening Products for 1 and over Thik & Clear Nutra Balance www.nutra-balanceproducts.com/nutrabalance_products_thickclear.php Simply Thick www.simplythick.com Thick-It www.thickitretail.com/wheretobuy.aspx Thickening Products for 3 and Over Thicken‐Up and Thicken‐Up Clear TAD Enterprises www..tadenterprises.com Nestle Nutrition www.nestlenutrition.com/departments/therapeutic‐nutrition/swallowing‐ difficulties/resource‐thickenup‐instant‐food‐thickener Walgreens www.walgreens.com Thick & Easy www.homecarenutrition.com Thick & Easy Instant Food Thickener 29 2/17/2015 Natural Thickeners • Adding milk to yogurt or pudding • Mixing juice with baby food or blended fruits • Mix flavored or non-flavored gelatin with juice in a blender • Add bread crumbs, potato flakes, crushed crackers, or pureed meats to stews and soups • Cornstarch • Arrowroot Thin Liquids • Popsicles • Ice cream • Jello • Milkshakes • Broth based soups (cream based-ok) • Liquid medications Coverage for Thickeners • Private insurance will not cover thickener • BCMH will cover thickener • If patients have BCMH, a script should be provided • Families can take script to a BCMH accepting pharmacy (CVS, Walgreens, mail) and get the script filled at the pharmacy • Or, the care coordinator can fax the script and the video swallow study to a BCMH dietitian to expedite the process • If they do not have BCMH, they need to try to apply and attach the video swallow study to the application 30 2/17/2015 Purpose of Tracheostomy • To relieve upper airway obstruction • Foreign body or trauma • Edema • Structural abnormality • Improve Respiratory function • Need for long term ventilation/intubation • Respiratory Paralysis • Unconscious head injury • Vocal cord paralysis • Paralysis of diaphragm Trachs and Swallowing • Swallowing issues with trachs • Decreased subglottic pressure • Reduced sensation • Reduced sense of smell and taste • Tethering of larynx • Cuffed trachs do not prevent aspiration • Once material has reached the level of the cuff it has passed through vocal cords‐aspiration • Patients can eat with trachs/vents What is a Passy Muir Valve? • Valve that is worn at the end of the trach • On inhalation, the PMV opens and lets air enter the trach and lungs. • On exhalation, the PMV closes and forces air up through the vocal cords and out of your mouth. • Fits on all size/types of trachs • Can also be used with patients on ventilators. http://passy‐muir.com/home 31 2/17/2015 Benefits of Passy Muir Valve • Restores communication • Supports speech/language development • Improves swallowing, may reduce aspiration • Improves quality of life • Improves sense of smell and taste • Helps with management of secretions • Improves infection control • Helps with weaning from ventilator and decannulation • If patient has one, we use during VSS. http://passy‐muir.com/home FOIS Functional Oral Intake Scale • TUBE DEPENDENT (levels 1‐3) • 1 No oral intake • 2 Tube dependent with minimal/inconsistent oral intake • 3 Tube supplements with consistent oral intake • TOTAL ORAL INTAKE (levels 4‐7) • 4 Total oral intake of a single consistency Crary, 2005 FOIS • 5 Total oral intake of multiple consistencies requiring special preparation • 6 Total oral intake with no special preparation, but must avoid specific foods or liquid items • 7 Total oral intake with no restrictions Crary, 2005 32 2/17/2015 ASHA NOMS • Level 1: Not able to eat anything by mouth. • Level 2: Nutrition and hydration met by non-oral means. Child may take textures orally in therapy. • Level 3: Some non oral-feeding, plus oral feeding with consistent maximal assistance. • Level 4: Swallow is safe for pureed, moderate assistance; may need oral nutritional supplements, no tube feedings. ASHA, 2011 ASHA NOMS • Level 5: Swallow is safe with modified/chopped table food, minimal assistance. Total oral feedings. • Level 6: Swallow is safe with typical table foods, occasional minimal assistance. Child may avoid specific food items or may need additional time. • Level 7: Swallow is safe and efficient for all consistencies. Rarely needs monitoring more than expected for age matched peers. ASHA, 2011 References • Almeida, M., Almeida, J., Moreira, M., & Novak, F. (2011). Adequacy of human milk viscosity to respond to infants with dysphagia: experimental study. Journal of Applied Oral Science, 19 (6), 554-9. • American Speech-Language-Hearing Association. (2011). National Outcomes Measurement System: Pre-Kindergarten National Data Report 2011. Rockville,MD:National Center for Evidence-Based Practice in Communication Disorders. • Arvedson, J. (2006) Interpretation of videofluoroscopic swallow studies of infants and children. Gaylord, MI: Northern Speech Services. • Arvedson, J., Rogers, B., Buck, G. , Smart, P., & Msall, M. (1994). Silent aspiration prominent in children with dysphagia. International Journal of Pediatric Otorhinolaryngology, 28, 173-181. 33 2/17/2015 References • Christiaanse, M., Mabe, B., Russell, G., Long Simeone, T., Fortunato, J., & Rubin,B. (2011) Neuromuscular electrical stimulation is no more effective than usual care for the treatment of primary dysphagia in children. Pediatric Pulmonology, 46, 559–565. • Cichero, J., Nicholson, T., & September, C. (2013). Thickened milk for the management of feeding and swallowing issues in infants: A call for interdisciplinary professional guidelines. Journal of Human Lactation, 29 (2), 132–135. • Clarke, P., & Robinson, M. (2004) Thickening of milk feeds may cause necrotising entercolitis. Archives of Disease in Childhood: Fetal and Neonatal, 89, F280. • Crary, MA, Carnaby-Mann, GD & Groher, ME. (2005). Initial psychometric assessment of a functional oral intake scale for dysphagia in stroke patients. Archives of Physical Medicine and Rehabiltation, 86, 1516-1520. • Dailey, S. (October 2012) Management of feeding and swallowing disorders in infants with cleft palate and craniofacial anomalies. Nationwide Children’s Hospital. Columbus, OH. • Delzell, P., Kraus, R., Gaisie, G., & Lerner, G. (1999) Laryngeal penetration: a predictor of aspiration in infants? Pediatric Radiology, 29, 762-765. References • Evans-Morris, S., & Dunn-Klein, M. (2000). Pre-feeding skills: A comprehensive resource for mealtime development. (2nd ed). Austin, TX: PRO-ED, Inc. • Freidman, B., & Bolders Frazier, J. (2000). Deep laryngeal penetration as a predictor of aspiration. Dysphagia, 15, 153-158. • Gosa, M., Schooling, T., & Coleman, J. (2011) Thickened liquids as a treatment for children with dysphagia and associated adverse effects: A systematic review. Infant, Child & Adolescent Nutrition, 3 (6), 344-350. • Hollinger, L., & Sanders, A. (1991). Chronic cough in infants and children: An update. Laryngoscope, 101, 596-605. • Jackman, K. T. (2013). Go with the flow: Choosing a feeding system for infants in the neonatal intensive care unit and beyond based on flow performance. Newborn & Infant Nursing Reviews, 13, 31–34. • Kagaya, H., Inamoto, Y., Okada, S., & Saitoh, E. (2011). Body positions and functional training to reduce aspiration in patients with dysphagia. Japan Medical Association Journal. 54(1), 35–38. References • Khariwala, S.S., Lee, W. T., & Koltai, P. J. (2005). Laryngotracheal consequences of pediatric cardiac surgery. Archives of Otolaryngology: Head and Neck Surgery, 131 (4), 336-339 • Langmore, Susan. (May 2013) FEES: A procedure for evaluating oropharyngeal dysphagia. Boston, MA. • Lau, C. (2013). Is there an advantage for preterm infants to feed orally in an upright or sidelying position? Journal of Neonatal Nursing, 19, 28-32. • Logemann, J. (1998). Evaluation and Treatment of Swallowing Disorders. (2nd ed.). Austin, TX: Pro-Ed, Inc. • Loughlin, G. M., & Lefton-Greif, M. A. (1994). Dysfunctional swallowing and respiratory disease in children. Advances in Pediatrics, 41, 135-161. • Newmann, L., Keckley, C., Peterson, M., & Hammer, A. (2001) Swallowing function and medical diagnoses in infants suspected of dysphagia. Pediatrics, 108 (6) 1-4. • Newmann, L. (2001). Optimal care patterns in pediatric patients with dysphagia. Seminars in Speech Language, 21, 281-291. 34 2/17/2015 References • Prasse, J., & Kikano, G. (2009) An overview of pediatric dysphagia. Clinical Pediatrics, 48, 247-251. • Ramirez, Kathy. (2009) MBS: The clear picture (online course) • Sasaki, C. T., & Isaacson, G. (1998). Functional anatomy of the larynx. Otolaryngology Clinics of North America, 21, 196-199. • Weckmueller, J., Easterling, C., & Arvedson, J. (2011) Preliminary temporal measurement analysis of normal oropharyngeal swallowing in infants and young children. Dysphagia, 26, 135-143. • Van der Burg, J., Didden, R., Jongerius, P., & Rotteveel, J. (2007). Behavioral treatment of drooling a methodological critique of the literature with clinical guidelines and suggestions for future research. Behavior Modification, 31 (5) 573594. • Woods, C.W., Oliver, T., Lewis, K., & Yang, Q. (2012). Development of necrotizing enterocolitis in premature infants receiving thickened feeds using SimplyThick. Journal of Perinatology, 32, 150-152. Contact Please feel free to contact me with any questions or comments Colleen Vincent [email protected] 614-722-8688 35 2/17/2015 Pediatric Feeding: The Basic Ingredients for Success Caitlin Sirois MS, CCC-SLP Nationwide Children’s Hospital [email protected] Agenda • • • • • • • • • • Oral motor development Feeding skill sequence and food progression Clinical feeding assessment Factors that limit feeding development Components of feeding Oral motor components of feeding and therapy techniques Sensory based difficulties and therapy techniques Behavioral difficulties and treatment Feeding difficulties in cleft lip/palate specific diagnoses Tube feedings and oral stimulation Oral motor Development Newborn Oral Motor Reflexes All oral and pharyngeal reflexes serve a purpose for baby’s survival. • Rooting reflex • Phasic bite reflex • Suck-swallow reflex • Suckle reflex • Suckle-swallow reflex • Cough – airway is protected from foreign objects • Gag reflex is on the front third of tongue – reflex is a protective pattern • Tongue is cupped to provide channel for liquids to move backward • Fatty sucking pads, lips, tongue, palate all function together. (Overland, 2010; Morris & Klein, 2000) 1 2/17/2015 Oral Motor Skills 0-3 Months 1 Month: • Reclined (45 degrees or less), sidelying, supine with head slightly elevated or prone position • Suckling or sucking pattern used with breast/bottle. – Tongue may protrude through lips (due to extension/retraction movement - suckle/swallow) – Some liquid loss normal 3 Months: • Supported semi-slightly reclined position (45-90 degrees) • Primitive suckle-swallow response used for posterior bolus propulsion – Liquid may be pushed out of mouth due to tongue extension/retraction movement (Morris & Klein, 2000) Oral Motor Skills 4-6 months • Semi-reclined position • Rooting reflex decreases between 3-6 months • Biting: – Phasic (bite-and-release) pattern is used (regular rhythm and stereotypic). Occurs reflexively (when food touches teeth or gums) and decreases by 5 months of age. – Phasic bite is also main pattern in chewing. May see some rotary movements if food is placed on the gum surfaces, may see transfer to midline. – Controlled, sustained bite not yet present, may suck solids instead • Chewing: – Munch chew pattern is active between 5-6 months (intermittent, non-stereotypic vertical movements of jaw) • Breast/Bottle: – Decreased coordination of suckle, swallow breath as sucking becomes more active • Continues to use suckle in anticipation of spoon/solid and to swallow food/liquids – As suckle becomes more active, you see decreased coordination of suckle, swallow, breathe • Upper lip is not used for bolus removal. • Gag reflex is moving back within mouth/slightly less sensitive (Overland, 2010; Morris & Klein, 2000; Meyer, 2007) Oral Motor Skills 6-7 months • Breast/bottle: – No liquid loss during sucking, however may see some when nipple is removed or when beginning/ending the suck – Long sequences of suck, swallow and breathe noted. • Cup drinking: – suckle or sucking pattern may be used (or a combination of the two), with extension/retraction tongue movements as cup is offered/removed and during drinking. Liquid loss and wide jaw excursions are typical – Less coordinated suck/swallow/breathe noted (vs breast/bottle). • Jaw: – remains stable in open position upon acceptance of spoon, less suckling (extension of tongue) with spoon • Chewing: – Vertical chewing pattern is more variable and less stereotypic/automatic. – Diagonal/rotary movement noted when chewing foods placed on gum/molar surfaces • Tongue: – Right/left tongue lateralization emerging when solids placed to gum/molar surfaces (Morris & Klein, 2000) 2 2/17/2015 Oral Motor Skills 7-9 months • Begin more upright position (90 degrees) with external support for sitting at 7 months and no external support needed by 9 months • Tongue and Lips: – Lateral tongue reflex resolves (6-8 month), becomes active with more lateralization when food is placed on gum/molar surfaces. – Beginning of active transfer of food from midline to side, side to midline – Active lip movements: upper lip moves downward and forward to rest on spoon and remove food • Suckling and sucking patterns still noted when bottle/breast feeding with tongue protrusion to facilitate a swallow • Cup drinking – jaw is still unstable, may still have difficulty coordinating suck/swallow/breathe • Chewing: – Can bite and hold solids, needs assistance to break off pieces – Vertical chewing (non-stereotypic in rhythm) present with diagonal/rotary chewing pattern for moving food to sides, occasionally see phasic bite and release pattern • Gag is on back third of tongue • Teething begins between 5-9 months (Meyer, 2007; Morris & Klein, 2000; Overland, 2010) Oral Motor Skills 10-12 months • Lips: – Improved lip closure for swallowing liquids – Upper lip moves forward, down and inward to remove bolus from a spoon, while lower lip moves inward as spoon is removed • Cup drinking: – Improved coordination – Tongue may protrude to provide extra support/stability • Chewing: • • Food or saliva loss may occur while chewing Controlled and sustained bite with soft solids, may have phasic bite or sucking with hard solids due to not able to sustain powerful bite Diagonal then rotary chew pattern develops • • Tongue: – Transfer of food from midline to side and side to center of mouth – Gag moves back (toward pharyngeal wall) (Overland, 2010 ; Morris & Klein, 2000) Oral Motor Skills 13-15 months • Emerging dissociation of jaw, lips, tongue • Jaw: • Lip closure: – – Stability for biting increases Phasic bite reflex is integrated by 15 months, no longer present – Diagonal rotary chewing, movements are well coordinated – • – – • Some lip closure may start to be seen with chewing Cup drinking/Spoon feeding: During cup drinking, can maintain a continuous suck Uses sucking pattern or combination of sucking and suckling for spoon feeding Well coordinated suck/swallow/breathe pattern (by 15 months) (Overland, 2010) (Morris & Klein, 2000; Overland, 2010) 3 2/17/2015 Oral Motor Skills 16-18 months • Jaw, lips, tongue move with increased separation/ smoother integration • Lips: – Good control of liquid with upper lip closed on cup edge for better seal • Jaw: – Controlled bite with possible slight head extension (backward) to assist with bite – Can intermittently chew with lips closed, minimal to no liquid/food loss may occur while chewing – Some internal jaw stability, however for cup drinking external jaw stability obtained by biting on edge of cup • Tongue: – Tongue-tip elevation used for swallowing (reduced tongue protrusion with swallowing) (Overland, 2010 ; Morris & Klein, 2000) Oral Motor Skills 19-24 months • Uses tongue to clean lips • Can straw drink with long sucking sequences • Lips: – Lip closure noted with chewing • Jaw: – Internal jaw stabilization emerging by 24 months – Controlled bite without associated head movement (24 months) – Diagonal rotary chewing pattern • Cup drinking: – Uses up-down sucking pattern; no liquid loss from cup (24 months) • Tongue: – Tongue tip elevation and tongue retraction used for swallowing and tongue moves independently of jaw – Right/left tongue lateralization of food without pausing at midline (center to side, side to center, side to side across midline) (24 months) • Should be able to eat any texture; chews meat completely (Overland, 2010 ; Morris & Klein, 2000) Oral Motor Skills 25-36 months • Jaw: – Appropriate jaw grading for biting and chewing foods of varying thickness – Circular rotary chew pattern when transferring food – Active sucking and internal jaw stabilization without biting the edge of cup (for cup drinking) • Gradual refinement of tongue movements – Tongue used in free, sweeping motion to clean food from lips – Tongue elevation and depression are independent of jaw movement – Tongue tip elevation used consistently for swallowing • Mature swallow pattern with no loss of food/saliva (Overland, 2010 ; Morris & Klein, 2000) 4 2/17/2015 Feeding skill sequence • Transitioning from nipple to spoon to solid – Positioning: move from semi‐reclined to upright – Mouth opens from ungraded to graded movement (usually accurate by 2 years of age) – Sucking to stripping spoon – Bolus transport moves from inefficient to efficient – Adding self‐feeding disrupts the original skill, so you have to make the task easier. • For example, if the child is chewing, you may want to offer mashed foods when targeting self‐feeding and then offer soft solid foods as the feeder to target chewing skills Sheppard, 2012 Food progression • Purees sequence – Smooth (Stage 1 and Stage 2 baby foods) – Grainy (cooked oatmeal) – Ground (finely grain, even textured) – Mashed (pieces about size of grain of rice, even consistency) • Chewing sequence – Hard foods for oral exploration (stale licorice, SlimJims, biter biscuits) – Puffs/”meltables” (brand name yogurt melts/ puffs, graham crackers, hulless popcorn, Towne crackers, etc) – Soft pieces (cooked vegetables, soft fruits/banana) – One soft texture and then mixed soft foods (pasta, scrambled eggs moving to macaroni and cheese, french fries, chicken nuggets) – Hard and fibrous foods (cookies, chips, hamburger, etc) Sheppard, 2012 Referral for Clinical Feeding Assessment • Typical Criteria for Referral: • Failure to thrive (weight loss or lack of weight gain) • Weak suck • Suck-swallow-breathe incoordination • Diagnosis associated with dysphagia • Coughing/gagging during feeds • Behavioral problems or irritability • Pneumonia or concerns for aspiration • Feedings taking more than 30 minutes • Unexplained food refusal • Vomiting with feeding • Regression/change in medical status • Breathing problems during feeding • Delay in feeding milestones (Arvedson & Brodsky, 2002) 5 2/17/2015 Why A Clinical Feeding Assessment? • Clinical evaluation enables therapist to: – Identify possible etiologies underlying the dysphagia – Hypothesize the nature and severity of dysphagia – Establish a baseline of patient’s skills – Introduce therapeutic techniques/modifications – Investigate safe feeding options for the child while being sensitive to family/cultural differences – Determine if instrumental assessment is warranted; identify appropriate instrumental assessments – Develop and execute your plan (Arvedson & Brodsky, 2002) Components of a Clinical Feeding Assessment • Family and social history • Prenatal/ birth history • Medical and developmental history • Medical Status • Medical interventions • Feeding history • Physical exam: Oral-motor structures/function, sensory or motor-based problems, postural control • Feeding observation (Arvedson & Brodsky, 2002) Clinical Feeding Assessment: Feeding History • Feeding History – Can differ among reporters because perceptions about child’s skills/abilities may vary – Children often exhibit different feeding behaviors for different feeders, and different behaviors in different environments – Caregivers’ descriptions of feeding behaviors are accurate from their perspective, but there may be inconsistent reports from one feeder/caregiver to another. – Important to gather information from multiple formats including a printed questionnaire that can be sent home prior to the evaluation, and an interview during the evaluation (to gather most comprehensive history) (Arvedson & Brodsky, 2002) 6 2/17/2015 Clinical Feeding Assessment: Feeding History (continued) • Feeding history should include the following factors: – – – – – – – – – – – – – – Position for feeding/seating Duration of feeding and how long in between feedings Tube feeding Breast or bottle feeding (type of nipple/bottle) Types of foods (textures), consistencies (thickened liquids?) Self-feeding/utensils used Respiratory status (noisy breathing, coughing, choking, vocal quality, asthma, etc) Other signs of distress (food refusal, fussy during feeds, falling asleep, arching, etc) Tests (upper GI, VSS, surgeries, medications, etc) Food diary Sleep patterns Cognitive and communication status Behavior during meals History of interventions (Arvedson & Brodsky, 2002) Clinical Assessment: Physical Exam • Must include attention to patient’s: – Level of alertness – Positioning – Respiratory status – Cognitive level of functioning – Communication abilities – Oral-motor and sensory skills • Feeding difficulties may stem from broader deficits in central nervous system or peripheral nervous system • Feeding difficulties can also be influenced by respiratory and GI issues • Assessment of feeding difficulties involves continuously evaluating a patient to determine the nature of the problem in order to come up with the most effective treatment. • Must interpreter child’s cues for feeding readiness and rely on parents/caregivers (Arvedson & Brodsky, 2002), Clinical Assessment: Feeding Observation • Naturalistic and Elicited Feeding observations • Position • Foods presented • • Developmentally appropriate for child’s skill level? Tools/utensils used • Response of feeder • Response of child to feeder • Signs of distress • • • • How does parent/primary feeder respond during feeding (body language, attitude, etc) Primary feeder and child mealtime communication and interactions Avoidance or resistance to particular foods/ etc Behavior (Arvedson, 2008) 7 2/17/2015 Assessment Tools/ Scales The Neonatal Oral-Motor Assessment Scale (NOMAS) Revised Version of the NOMAS The Holistic Feeding Observation Form SOMA: Schedule for Oral Motor Assessment The Multidisciplinary Feeding Profile (MFP) Oral-Motor/Feeding Rating Scale The Patient Profile for Swallowing and Feeding Function (The PPSFF) Beckman Oral Motor Assessment (Arvedson & Brodsky, 2002; Sheppard, 2012) Feeding: A Team Approach • It is important to consider the whole child when evaluating their feeding skills. We often refer to other disciplines, and a child’s multidisciplinary team may include: • Physician, Gastroenterology, Clinical Nutrition, Psychology, Otolaryngology, Nursing, OT and/or PT. • We may also make referrals to Craniofacial team clinic, Dentistry, Lactation. (Fraker & Walbert, 2003) Interdisciplinary Feeding Clinic at Nationwide Children’s Hospital • Outpatient service for children with feeding difficulties requiring the services of three or more disciplines. • Depending on your patient’s needs, they have appropriate specialists available at the appointment. • Our team consists of a variety of specialists including Pediatrics, Developmental Pediatrics, Psychology, Nursing, Clinical Nutrition, Occupational Therapy, and Speech Therapy. • This team provide a comprehensive assessment of children with feeding difficulties/ issues. The team assesses the child at one appointment and conferences together throughout your appointment time to collaborate on what they find. 8 2/17/2015 Interdisciplinary Feeding Clinic • Every Thursday in Dublin Medical Office Building • Appointments are 1 ½ hours long • All disciplines see the family and patient together. • Family is asked to bring preferred and non-preferred foods • At the conclusion of clinic, the family will receive a summary of findings and recommendations from all disciplines • Medical and limited behavioral follow-up • Referrals: Please fax the Medical Specialty Clinic Patient Referral Form and fax to Nationwide Children’s Hospital Dublin Close To Home SM Center, Attention: IFC. Fax: (614) 355‐8410. Or call the office at (614) 355‐8400 Intensive Outpatient Interdisiplinary Feeding Program at Nationwide Children’s Hospital • All patients initially seen through Interdisciplinary Feeding Clinic in Dublin • Interdisciplinary with developmental pediatrician, feeding therapist, psychology, and dietitian • Family completes 3 meals per day, 5 days per week, for 6‐8 weeks • See school teacher and other disciplines between meals • All meals completed by psychology or feeding therapist and collaborate daily in treatment planning • Family meeting 1 day per week • Monitor weight twice per week Who Attends the Intensive Program? • Stalled progress in traditional outpatient therapies • Fast need for treatment progress (e.g., prevent g tube removal) • Primary reasons for treatment to date (n=10) • Decrease G tube dependence by increasing volume- 4 • Prevent G tube by increasing volume- 2 • Increasing variety of food/textures, pocketing, chewing skills- 4 9 2/17/2015 Factors that Limit Feeding Development • Major functional issue is not whether the patterns are “normal” but rather whether it limits further acquisition or refinement of skills required for mealtime success • Limiting factors may be influenced by all aspects of the feeding environment in which they occur. (Morris & Klein, 2000) Structural Limitations • Oral-facial: • Cleft palate/cleft lip • Micrognathia • Macroglossia • Gastrointestinal: • • • • • • Pyloric stenosis Esophageal stricture-narrowing of the esophagus Esophageal atresia- esophagus with a blind pouch Tracheoesophageal fistula- fistula between the trachea and the esophagus Esophageal atresia Short bowel syndrome • Respiratory/Cardiac: • Tracheomalacia/ laryngomalacia- trachea or walls of larynx lack adequate “tone” • Pulmonary atresia/ pulmonary stenosis • Holes in heart (i.e. Tetrology of Fallot) or underdeveloped heart (i.e. hypoplastic left heart (Morris & Klein, 2000) Physiological Limitations • Oral-pharyngeal: • Aspiration • Gastrointestinal • Gastroesophageal reflux • Esophagitis • Esophageal dismotility • Stomach dismotility • Delayed gastric emptying • Constipation • Diarrhea • Respiratory/Cardiac • Bronchopulmonary dysplasia • Hypotonia/Hypertonia • Scoliosis or kyphosis (Morris & Klein, 2000) 10 2/17/2015 Other Experiential Limitations • Physical and Sensory Experiences: • Respiratory distress • Sensory modulation/ sensory defensiveness • Gastrointestinal discomfort • Allergies • Orogastric/ nasogastric tubes • Emotional Experiences: • Physical or sexual abuse • Fear or control issues • Mealtime Experiences: • Force-feeding • Differences between parent and child expectations • Disagreements about the feeder/child mealtime relationship • Environment (Morris & Klein, 2000) Development of Feeding • In designing and implementing effective treatment, several questions need to be addressed: • 1. “What pre-feeding and feeding skills does the child already have?” • 2. “What sensorimotor difficulties are interfering with a continued progression toward competent and efficient feeding skills?” • 3. “What specific feeding areas is this child ready to work on, and what is the best progression or sequence for teaching these skills?” • Look at oral motor and feeding skills in the context of the whole body. The mouth can be influenced by developmental issues and patterns throughout the body. • With stability comes mobility. • Oral stability is dependent upon stable head/neck/shoulders, which are dependent upon a stable trunk and pelvis. (Morris & Klein, 2000) Components of Feeding • Oral Motor • Sensory • Behavior 11 2/17/2015 Oral-motor vs Sensory issues • Oral-motor issues • • • • • • • • Inefficient suck Swallowing foods whole Anterior bolus loss Difficulty with bolus manipulation on tongue Incoordination of oral motor skills Gag with food and liquid AFTER food reaches tongue base, after swallow initiation Mouths objects and tolerates toothbrushing Vomiting is not texture specific • Sensory issues • • • • • Nipple confusion Vomiting is texture specific Gag with food BEFORE it touches or AS it touches lips Does not tolerate toothbrushing Holding of foods in oral cavity (Arvedson & Brodsky, 2002) Tone, Posture and Positioning • Hypertonia/ High muscle tone – Structures may appear smaller because fibers are shortened and closer together at rest – What does this look like? • Increased resistance to passive range of motion, spasticity, abnormal movement patterns • Hypotonia/ Low muscle tone - Structures may appear larger because fibers elongate and there is more space between fibers at rest - What does this look like? • Increased joint range of motion, decreased resistance to passive range of motion, poor ability to move against gravity (Morris & Klein, 2000; Swigert, 1998; Beckman, 1995) Positioning and Feeding • Safe and efficient feeding is dependent on good posture • Abnormal postures provide a poor base of stability which in turn interferes with the development of oral motor function • “Problems with central alignment, tone, and positioning relate directly to the oral sensorimotor system.” • Observe the patient in their typical seating system for feeding • Abnormal postures may be a compensatory strategy to provide stability • For example, development of neck hyperextension and tongue retraction may be due to an abnormal base of stability to lift and turn head and open mouth. • Optimal positioning for oral motor function: • Neutral head position, hips in line with lips (pelvic stability), shoulder girdle stability, support under the feet for hips/knees/ankles (Arvedson & Brodsky, 2002); 12 2/17/2015 Muscle Tone and Positioning Hypertonia: – Goal: Inhibit increased tone and facilitate movement – Signs of hypertonicity: tongue retraction, tonic tongue tip elevation, tongue thrusting – Therapy: relax musculature through massage and gentle shaking and vibration • Begin intervention at whatever level the child is comfortable w/food Hypotonia: – Goal: Improve stability, alignment and posturing – Signs of hypotonicity: tongue protrusion, tongue retraction, limited tongue ROM, limited upper lip movement – Therapy: massage, vibration, firm tapping, deep pressure, tactile input to lips/ cheeks/ tongue may increase tone (Meyer, 2005; Beckman, 1995) Jaw Patterns Normal Jaw Patterns: • • • • • • • • Close and hold Wide Jaw Excursion Phasic biting Munching Lateral jaw shift Diagonal movement Diagonal rotary movement Circular rotary movement Abnormal Jaw Patterns: • • • • • • • • Jaw instability Exaggerated jaw movement Tonic bite reflex Jaw thrust Jaw retraction Micrognathia Dystonic jaw movement Bruxism (Morris & Klein, 2000; Beckman, 2013) Tongue Patterns • Normal tongue patterns: • • • • • Suckling Sucking Tongue Tip Elevation Munching Lateral Tongue Movement • Abnormal tongue patterns: • • • • • • • Exaggerated Tongue Protrusion Tongue Thrust Tongue Retraction Tongue Fasiculations Asymmetry Macroglossia Ankyloglossia (Morris & Klein, 2000; Beckman, 2013) 13 2/17/2015 Lip Patterns • Normal lip patterns: – Lip rounding – Lip spreading – Lip closure • Abnormal lip patterns: – Lip tremor – Asymmetry – Hypotonic lips – Lip fasciculations (Morris & Klein, 2000; Beckman, 2013) Oral Motor Treatment • Ways to improve oral motor skills during the developmental period include: – – – – – – Resolving/managing medical issues Eliminating aversive elements “Optimize environment, seating and postural alignment” Encourage child to have sense of control by allowing him to chose foods and utensils Adjust meal duration as needed based on child’s cues (depending on tolerance) Habituate skills and generalize to natural environments (including familiar feeders) • Ways to improve oral motor skills after the developmental period include: – – – – – – Set up child for success by starting at a step that is easiest and repeat until child is comfortable Change one variable at a time Return to previous level of comfort if problems arise Practice skills at snack time Achieve acceptance before adding new skill Reduce environmental stressors including complexity of task (Sheppard, 2012) Weak Suck/Poor Lip Seal/ Poor Pacing • Weak suck – Jaw/cheek support (gentle but firm pressure on mandible) – Increase flow rate if patient can tolerate it – Honey bear cup with straw (if patient is older) • Poor lip seal – Jaw support and cheek/lip support (lip: use middle finger under lower lip, cheek: use thumb and middle finger on cheeks) • Poor pacing – External pacing (leave nipple in the mouth and tip bottle base downward to stop flow without breaking the seal) – decrease flow rate to reduce frequency of swallow (Swigert, 1998) 14 2/17/2015 Jaw Control and Tone • Increase child’s ability to maintain jaw closure and jaw opening by assisting in opening and closing without tension • Treatment: • Purpose: to assist with upward and downward jaw movement, to provide a point of stability (at level of lower lip). • Place your middle finger under the jaw • Place index finger on chin just below lower lip • Place thumb at TMJ • Treatment for low tone: • Create songs or sing nursery rhymes while tapping/patting/stroking – provide proprioceptive and tactile stimulation of jaw muscles • Treatment for increased tone: • Positioning/postural alignment; gentle massage (Morris & Klein, 2000) Jaw Instability • Jaw slips and/or shifts off-center or forward due to insufficient tone and control of TMJ • Treatment: • Provide a point of stability (i.e. jaw shelf). Provide firm pressure on mandible • Sustain jaw closure (tug and pull “dog” game) • Patting, tapping and other tactile stimulation to muscles that open/close jaw • Bruxing treatment: help explore pleasurable sensory experiences (teether, chewy tube/theratubing, cold/frozen washcloth, crunchy snack) (Morris & Klein, 2000) Tonic Bite • Mandible clenches on an object; caused or exacerbated by: • Hypertonicity (jaw moves into clenched posture when teeth are stimulated) • Related to poor sitting position‐ trying to stabilize • Reaction to an over stimulating environment • Treatment Ideas: • Positioning • Reduce hypersensitivity • Increase sensory input • Tapping or lightly but firmly shaking object to face • Reduce amount of multi‐sensory information (environment) (Morris & Klein, 2000) 15 2/17/2015 Chewing Resistive Chewing: • Place item so that it is between upper and lower teeth at level of molars/gums, perpendicular to gum line. • Give steady pressure into upper jaw. • Maintain contact between teeth for a maximum of 20 seconds. • If no chewing occurs, provide pulsating pressure up into upper jaw with the item at a rate of 1 per second. • Utilize a tool such as a chewy tube, Ark probe, NUK brush Practiced Chewing: • First use a resistive chewing tool (such as a chewy tube) without food • May also dip the resistive chewing tool in a food (such as a puree) or stick small pieces of food in the end of a/on a tool (such as a chewy tube) – May also use stale licorice stick, SlimJim. • Work up to tolerating a piece of food wrapped in mesh/fabric pouch • Then practice chewing without mesh (Beckman, 2013; Meyer, 2007) Tongue (Cupping and Bunching) Treatment Ideas: • Assisting with tongue cupping: – Downward firm pressure with bowl of spoon on center of tongue blade to encourage upward movement. Leads to anterior/posterior tongue movement – Lingual stroking/tapping and jaw support • Treating bunched tongue: – Lingual stroking/tapping – Using textured bottom spoon with firm pressure on center of tongue – Increase sensory awareness and feedback in tongue (vibration) (Meyer, 2007; Swigert, 1998), Tongue Retraction and Tongue Thrust Tongue retraction: Occurs when the tongue pulls back into the oral cavity; may be caused or exacerbated by: • Low or high tone that creates exaggerated extensor movements • Positioning • Treatment: • Positioning (head/neck) • Lingual stroking/tapping, Vibration/Stimulation to center of tongue Tongue Thrust: Forceful protrusion of the tongue in an inconsistent/ intermittent movement • Treatment: • Firm input • Positioning changes • External jaw support • Side placement of the spoon (Swigert, 1998; Morris & Klein, 2000) 16 2/17/2015 Limited Tongue Movement • Limited tongue movement may be seen when eating or when mouthing toys; caused or exacerbated by: • High tone‐ causes tongue to be stiff • Low tone‐ causes tongue to be floppy • Flaccid tongue due to cranial nerve (XII‐hypoglossal) damage • Treatment: • Increase sensory input to tongue • Start with toys/fingers in mouth • Vibrations to tongue and oral cavity • Stimulation to lateral borders of tongue • Stimulation to lips or to area you want tongue to move‐target • Improve active lip/cheek control • Provide stimulation to the lateral borders of tongue during oral play (non‐ nutritive stimulation) for lateralization (Morris & Klein, 2000; Beckman, 2013) Lip Movement • Can be seen in eating, mouthing toys or vocalizing/verbalizing; caused or exacerbated by: • High or low tone • Facial weakness and/or decreased facial sensations due to cranial nerve damage • Treatment: • Vibrations/ tactile stimulation to face, cheeks and jaw muscles • Increase sensory input to upper lip • Increase control of upper lip through straw drinking • Improved range of motion (Morris & Klein, 2000) Cup Drinking • Wide lipped open cup is recommended (nosey cup, infatrainer) • Discourage use of nonspill cups • No spill sippy cups are difficult to learn to drink from • Perpetuate oral motor movements used in bottle drinking • Single sips at first • Start with thicker liquids (for increased control) • Start with giving child empty cup in play • Put preferred baby food on cup to encourage child to bring to mouth • May transition to a recessed lid cup with two handles (Morris & Klein, 2000) 17 2/17/2015 Drooling • Control of drooling occurs gradually in a child’s development and can be influenced by: “position, activity, oral motor control and level of motoric innervation that has been achieved.” • It may occur when a child is learning a new skills and continue until the skill is mastered and becomes automatic. • Very little saliva is produced before the infant is 3 months of age due to the mouth only producing the minimal amount to keep the mouth moist. Saliva mixture increases as child begins taking solids to assist with binding food and digestion. • By 6 months, infants should be able to control drooling in various positions (supine, prone, supported sitting) unless they are teething or using hands to reach/manipulate objects. • Level of oral control may be reduced when child is concentrating or completing a task requiring fine motor control, thus you may see more drooling. (Morris & Klein, 2000) Drooling (continued) • Drooling is the unintentional loss of saliva from the mouth. • Normal infancy and usually subsides as oral motor function matures. • Drooling while awake after 4 years of age is considered abnormal (Van der Burg 2007) • Various treatment strategies have been reported, such as oral motor training, proper positioning, behavioral therapy, use of intraoral devices, medication, and surgery (Blasco & Allaire, 1992) Sensory based difficulties • Hyposensitivity and hypersensitivity • Food texture, temperature and taste may all influence sensory based problems and altering these should be considered as part of your treatment toolbox 18 2/17/2015 Oral Hypersensitivity • Heightened awareness of stimuli in mouth; decreased sensory threshold to oral input. May show a heightened response/ oversensitivity to taste, temperature and/or touch in and around the oral cavity. • What does this look like? – A child may respond to a strong flavor by exhibiting a tongue thrust. • Caused or exacerbated by: • • • • • • • Low threshold to stimuli due to neurological damage Overall lack of oral stimulation Oral motor delays due to food preferences (selectivity based on texture) Limited experiences with PO Negative oral experiences and respiratory issues (intubation, aspiration) GI issues (constipation, delayed emptying, reflux) Thinking that food “hurts” (aversion) • A child may have different tolerance levels to different foods (i.e. they may be able to eat crackers without difficulty but gag at the sight of pudding) (Arvedson & Brodsky, 2002; Meyer, 2005) Reducing Oral Hypersensitivity • Goal: Reduce hyper/ heightened sensitivity by gradually normalizing the fight or flight response to stimuli • Therapy techniques for reducing hypersensitivity include: – Beginning with whole body touch and working toward touch/input to hands/fingers, then to the face, and then tolerance of input/touch to the mouth – Food play (starting with dry things like bowls of rice, working toward finger painting with pudding/ whipped cream, sifting for gummy bears in jello, etc) • This gets child comfortable with feeling the foods on their hands and fingers first. • Messy = a good thing! – Encourage oral motor play with toys (Meyer, 2005) Food Play • Children use hands to explore • Encourage children to touch new textures themselves to increase exposure • Children may inadvertently put a new texture in their mouth 19 2/17/2015 Oral Hyposensitivity • Reduced awareness of stimuli in mouth; heightened sensory threshold to oral input. May show a diminished response to taste, temperature and/or touch in and around the oral cavity. • What does this look like? • A child may crave foods that have strong flavors, crunchy textures, extreme temperatures – foods that provide increased oral input. This child may overstuff their mouth, lose food or drool. • Caused or exacerbated by: • High threshold to stimuli due to neurological damage • May be due to low tone or some weakness (Meyer, 2005) Normalizing Oral Hyposensitivity • Goal: Increase sensory input by offering strong sensory experiences. In order for the child to feel the sensation, the mouth seeks/requires so much more information. • Therapy for normalizing oral hyposensitivity include alerting techniques: – Facial massage (including tapping and vibration) with varying different textures (rough/smooth washcloth, toys with ridges or bumps, ARK probe, yellow propreefer, NUK brush) – Using cold and tart as alerting tools (cold teether, lemon swabs) – Strong flavors (salsa, BBQ sauce, Ranch, spices) – Alter temperature (chilled vs room temperature vs warm) (Meyer, 2005) Therapy ideas for the feeder with sensory issues • Think about all sensory traits involved in feeding: – – – – What do you see/ what does the food look like? (appearance, color, size) What do you smell? What does the food feel like? What does the mealtime experience/ the food sound like? • Overall goal with sensory feeding problems is to NORMALIZE the child’s response to sensory stimulation • Change…… – texture – color – shape – flavor – location (Meyer, 2005) 20 2/17/2015 Change by Texture • Add small bit of smashed meltable/graham cracker to puree • May need to transition slowly • Put large amount of puree on spoon with “tiny amount” of textured puree on tip of spoon • Decrease amount of puree and increase amount of textured puree • Can gradually increase amount smashed meltable/graham cracker in with puree until puree is more of a “lumpy puree” • To transition from “lumpy puree” to ground presentations • Change texture by putting through grinder • Present in similar way as described with puree (Arvedson, 2008; Fraker et al., 2007) Change by Color • Pick preferred food and “bridge” to non preferred food by choosing a food similar in color • Make sure you are only changing color‐ could also be changing texture and food group (Fraker et al., 2007) Change by Shape • Pick preferred food and “bridge” to a new food by changing shape • Chicken nuggets from Wendy’s versus my freezer or smaller versus larger sizes • Applesauce from grinding apple bits • Cheese cut into strips similar to string cheese (Fraker et al., 2007) 21 2/17/2015 Intensify • Add small amount of salt or pepper to pureed vegetables • Add small amount of sugar to fruits • Add gravy powders to meats • Add small amounts of spices to foods • tarragon, garlic, dill, Italian herbs (Fraker et al., 2007) Change by… Location • Take food out of the original container • Put baby food jar in the bowl • Have child help take out of container to bowl • Remember not to overwhelm the child by expecting too much too soon (Fraker et al., 2007) Behavior Problems • Behaviors during mealtime may be due to the parent-child relationship • Children can sense caregivers who are controlling (over- or under-), anxious, insensitive to child’s cues, etc. • Disrupts the dynamic and may cause behavioral feeding problems • Behaviors may also be due to child’s health status, dietary restrictions, physical problems, temperament, feeding-related trauma • Common feeding problems may include food refusal, selectivity by type, selectivity by texture as well as oral motor and swallowing problems. These can all be underlying causes for behavior problems. (Kerwin, 1999; Piazza, 2008) 22 2/17/2015 • Antecedent: Parent asks if child wants to try an unfamiliar food • Behavior: Child cries and pushes the spoon away • Consequence: Parent offers a preferred food instead Antecedent management • Repeatedly offer new foods • Offer age appropriate portions/bite sizes • Eliminate eating between meals & snacks • Provide positive social interaction • Eliminate distractions • Get unpleasant foods done early in meal • Schedule formula/tube feedings right after meals • Decrease demand initially • Decrease anxiety by slowly moving from exposure to interaction • Smaller meals to build success (Morris & Klein, 2000) Resulting Behaviors • Behaviors are usually to escape or gain attention • • • • • • • Throwing food Spitting Hitting Self‐Injury Flat refusal Tantrums/crying Clamping mouth shut • Parents are the FUNNIEST cause‐and‐ effect toys (and so are dogs) (Kerwin, 1999; Piazza, 2008) 23 2/17/2015 Consequences • Use preferred foods as rewards • Use tangible nonfood rewards – Stickers, games, books, tv/video, toys – If mid‐meal, 15‐20 seconds unless accept next bite • Escape as a reward – Set a goal for amount of food eaten before child leaves table; start small; slowly increase goal over time • Token program – Stickers, sticker charts, point system, poker chips – After child earns so many, he can “cash in” for another reward such as game, preferred food, escape – Gradually increase demand over time • “Non‐Removal of Spoon” • Grandma’s Rule – You cannot do something you want to do until you do something you don’t want to do – Use “first, then” language – Once you select a reward, be sure access to it is limited to mealtimes • Co‐feeding (Kerwin, 1999) Behavior Modification Treatment • Increase desired behavior (positive reinforcement) • Decrease undesired behavior (extinction, time-out, ignoring) • Preferred and non-preferred foods (i.e. 1 bite of non-preferred food and then 3 bites of preferred food) • Acquisition of new skills (shaping, prompting, (peer) modeling) • Praise positive behaviors • Ignore negative behaviors • You are the boss- the meal ends when the parent says • Children can feel in control when given choices • Put a “No thank you” helping (1 tsp- 1 tbsp) of a new food on his/her plate, even if they are not going to eat it. (Sheppard, 2012; Arvedson, 2008; Kerwin, 1999) Interventions for Specific Problems • Escape (leaving the table) • Escape prevention‐ do not allow child to leave table until he’s followed instruction (seating, continuously bring back to table) • Allowing child to leave table after negative behavior (refusal, crying, vomiting) will reinforce neg. beh. • Escape (purposeful expulsion/spitting out) • Give smaller bites for ease of swallowing • Withhold reinforcement until swallowed • Re‐presentation: put the expelled food back in child’s mouth each time it’s expelled • Anxiety • Graduated exposure‐ start with tiny bites of food; less intimidating, easier to swallow • Vomiting • cover and continue with meal; use ignoring 24 2/17/2015 Interventions for Specific Problems • Tantrums, throwing, batting at spoon, head turning • Do not remove spoon, stay calm, keep neutral expression, give a “first, then” statement (“first bite, then all done”), wait, be silent • Gentle blocking with “hands down” prompt for batting only • If throw bite on the ground, replace with similar sized bite of same food • Clamping mouth shut • If the child has the skill: Non-removal of spoon • If the child does not have the skill: Use shaping • Start with reinforcing child after you touch the spoon to his lips; ignore inappropriate behavior • Once this step is tolerated- go through next steps • Tip of spoon between lips & remove • Tip of spoon between lips and wait until mouth opens slightly • Spoon at mouth and wait until half of spoon is accepted • Spoon at mouth and wait until entire spoon is accepted Praising • Look at child and before saying anything, determine if he/she is eating • If eating, make a positive comment and praise eating behavior • Praise is most effective when: • Occurs immediately • Describes behavior • Is varied-using different phrases Behavioral Feeding: Working from Exposure to Eating • Work with the family to create a list of foods that the child currently eats. • Create a second list of foods that family/therapist/etc would like for the child to try. Allow your child to help choose foods, as appropriate. • Start at the step listed below that is easiest for the child to do comfortably. • Exposure • • • • Helping prepare/cook a meal Tolerance Allowing the food to be on the table, moving toward it being on the child’s plate Interaction • • • • • Stirring yogurt, holding a carrot wrapped in paper towel, searching for a hidden food inside jello Touching food to your lips (“painting” it on or put on lipstick) Holding the food between your lips, tapping it to your teeth, holding it between teeth Biting off foods and “shooting rockets “(spitting food pieces into bowl) Biting, chewing and swallowing 25 2/17/2015 Slow and steady… • Stay at each step with each food to make sure the child is comfortable and complies easily with the request. • You may also find that you have to start at different steps depending on the food that is introduced. • You may need to make some adjustments to help your child proceed along the way. • Always provide lots of positive attention and praise for all attempts at compliance with this program. • Allow older kids to chart their own progress with a sticker chart, or to document their new foods in a special notebook. • These strategies will take time to work, but should help reduce the child’s fear or nervousness in trying new foods. Slow and steady wins the race! Food Chaining • Part of a sensory and behavioral based approach to feeding • “Food Chaining: The Sensible Six Step Solution to Picky and Problem Eating” by Cheri Fraker and Laura Walbert • When introducing new foods, start with ones similar to currently eat (or previously ate) and gradually expand – McDonald’s chicken nugget – Tyson chicken nugget – Chicken tenders – Lightly breaded home tenders – Chicken breast (Fraker et al., 2007) The Rules of Mealtime • Nutrition • Offer foods from all basic food groups • Schedule • Meals and snacks happen at roughly the same time every day and should be at evenly spaced intervals 2-3 hours apart • Meals take 30 minutes or less • No food or drink (except water) between meals and snacks, no grazing • Structure • Everyone sits together at the table, no forced feeding • Appropriate seating • Time limits • Limit distractions • Choices • Choices help children feel like they have control. • Allow children to assist in menu planning, cooking, and preparing the table as able. • Allow children to choose one food at each meal that they will eat. • Allow the child to select a plate, cup and spoon. (Arvedson, 2008; Chatoor, ) 26 2/17/2015 Common feeding observations in babies with cleft lip/palate – Difficulty pulling nipple into mouth – Difficulty sealing on nipple – Difficulty creating negative pressure/suction – Nasal regurgitation – Ingesting more air (Dailey, 2012) Cleft palate bottle systems • Mead Johnson • Any nipple can go on this bottle. • Squeeze it gently using a pulsing rhythm while the baby is sucking to help your baby drink. • Haberman • This nipple has three flow rates: slow, medium and fast. • It fits a regular bottle. • It has a one way chamber to adjust the flow rate. • Gently squeeze the nipple to help your baby suck • Pigeon • The Pigeon Nipple fits on any bottle. • There is a notch (air vent) in the nipple that points up toward the nose during feeding. • The baby munches to get the fluid out of the bottle Feeding tubes • Enteral Tubes - deliver formula by tube directly into the gastrointestinal system • Orogastric Tubes (OG) - through mouth to stomach-often used for preemies/babies whose nasal passages are too small for NG tube • • • • • Nasogastric Tubes (NG) Nasojejunal Tubes (NJ) Gastrostomy Tubes (G) Jejunostomy Tubes (J) Gastrojejunal Tubes (GJ) • Parenteral - bypass GI system and deliver formula intravenously by catheter to the bloodstream (Morris & Klein, 2000) 27 2/17/2015 Feeding tubes NJ-through nose, threaded through stomach and ends in jejunum of small intestines -used when stomach is functioning poorly -must be continous feeds vs bolus feeds as intestines require slower delivery NG vs NJ TUBE NG-through the nose to the stomach -can be removed for feeding or left in -advantage of being temporary -bolus or continuous -some debate on whether it affects swallowing -generally short term 2-3 months (Morris & Klein, 2000) Feeding tubes G tube ‐ Bypasses mouth and goes to stomach ‐ Long term solution G vs GJ vs J TUBE GJ ‐ Two branched tube that goes into stomach and second branch goes to jejunum ‐ This is used b/c some medications must go through digestive process ‐ Medication goes thru gastric port (g), food into (j) J‐tube ‐ Placed in jejunum ‐ Used when stomach is functioning poorly (Morris & Klein, 2000) Feeding tubes Parenteral TPN- total parenteral nutrition-nutrition is delivered into a large central vein by catheter - Used for kids with major dysfunction of GI tract TPN (Morris & Klein, 2000) 28 2/17/2015 Transitioning from Tube to Oral Feeds • Important to work to strengthen cheeks, jaw and tongue before presenting food/liquid • Food: 1. Increase quantity before increasing variety 2. Increase variety before increasing texture 3. Increase texture from smoothest tolerated, moving toward “regular” diet • Liquid: 1. Increase quantity before increasing variety (Beckman, 2013) Oral Stimulation • • • • Graded presentations to face, lips, tongue, teeth Usually start with a positive texture and work toward mouth Slow transitions Use items such as a favorite toy, wash cloth, silky blanket, NUK brush, infadent infant toothbrush, vibrating toy, Z-vibe, DuoSpoon, E-Z spoon (Morris & Klein, 2000; Fraker & Walbert, 2011) Oral Stimulation • Allow opportunities for your child to explore toys with their mouth. • Provide lots of loving and sensitive touch around the face. • Wipe face with warm or cold washcloth in a slow playful way. • Coordinate oral play with a song. (Morris & Klein, 2000 29 2/17/2015 Swallowing Secretions and Therapeutic Tastes • Work on improving ability to manage secretions/ swallow saliva • Provide some stimulation to increase saliva production and increase saliva swallows • Don’t add a bolus, only flavor saliva • Flavor saliva with powders and dip toothette in powder to get an increase in frequency of swallows • If they don’t tolerate this, work on plain saliva • Multiple reps 1x/day working toward multiple times per day (Sheppard, 2012) Biopsychosocial Model • Promote positive feeding relationship between child and feeder • Determine child’s readiness • Normalize feeding skills • Oral stim, eating-related behaviors, establish hungersatiation cycles • Regulate feeding environment • Initiate behavioral feeding plan • Bolus delivered on mealtime schedule • Therapy (Sheppard, 2012) References • Arvedson, J. (2008) Special Topics In Pediatric Feeding & Swallowing, Professional Development Programs • Arvedson, J & Brodsky, L. (1993) Pediatric Swallowing and Feeding, San Diego, CA, Singular Publishing Group • Beckman, D. (2007) Oral Motor Assessment and Training, Professional Development Programs • Chatoor, I. (2009) Diagnosis and Treatment of Feeding Disorders in Infants, Toddlers, and Young Children, Washington, DC, Zero to Three • Dailey, S. (October 2012) Management of feeding and swallowing disorders in infants with cleft palate and craniofacial anomalies. Nationwide Children’s Hospital. Columbus, OH. • Fraker, C. & Walbert, L. (2011) Pre-Chaining Programs for Infants & Children with Swallowing Disorders: Much to DO About Pediatric Dysphagia, Professional Development Programs 30 2/17/2015 References (continued) • Fraker, C. & Walbert, L. (2003) From NICU to Childhood: Evaluation & Treatment of Pediatric Feeding Disorders, Austin, TX. Pro-Ed • Fraker, C., Fishbein, M., Cox, S., Walbert, L. (2007). Food Chaining: The Proven 6-Step Plan to Stop Picky Eating, Solve Feeding Problems and Expand Your Child’s Diet • Kerwin, M. E. (1999). Empirically supported treatments in pediatric psychology: severe feeding problems. Journal of Pediatric Psychology, 24(3), 193-214. • Meyer, J. (2005). Pediatric Feeding Birth to Three: The Big Picture. Professional Development Programs • Morris, S. & Klein, M. (2000). Pre-Feeding Skills: A Comprehensive Resource For Mealtime Development, 2nd Edition. Austin, TX. Pro-Ed. • Overland, L. (2010). Feeding Therapy: A Sensory Motor Approach. Professional Development Programs References (continued) • Piazza, C. C. (2008). Feeding disorders and behavior: What have we learned?.Developmental disabilities research reviews, 14(2), 174-181. • Sheppard, J. (2012) Evaluation and Treatment of Pediatric Dysphagia: Physiologic, Developmental and Behavioral Disorders, Professional Development Programs • Swigert, N. (1998) The Source for Pediatric Dysphagia, East Moline, IL, LinguiSystems • Special thanks to Dr. Rob Dempster, Psychologist at NCH. Recommended Readings • Diagnosis and Treatment of Feeding Disorders by Irene Chatoor • Feeding and Swallowing Disorders in Infancy: Assessment and Management by Wolfe and Glass • Food Chaining: The Proven 6-Step Plan to Stop Picky Eating, Solve Feeding Problems and Expand Your Child’s Diet by Fraker, Fishbein, Cox and Walbert (2007) • Nobody Ever Told Me (Or My Mother) That! (Everything from Bottles and Breathing to Healthy Speech Development) by Diane Bahr (2010) • Pre-Feeding Skills: A Comprehensive Resource for Mealtime Development (2nd edition) by Evans Morris and Dunn Klein (2000) 31 2/17/2015 Please feel free to contact me with any questions or comments Caitlin T. Sirois [email protected] (614) 722-8689 32 Oral Motor/Feeding Evaluation or Video Swallow Study Checklist The below checklist can be used to help determine if a child needs referred for an oral motor/feeding evaluation or video swallow study. Outpatient Oral Motor/ Feeding Evaluation Child has the following problem(s): G agging: a regurgitate spasm in the throat, as from revulsion to a food or smell or in reflexive response to an introduced object. F eeding issues associated with a variety of syndromes/ conditions (i.e. Craniofacial disorders, Trach/ Ventilator kids, etc). A dvancement of diet: Transitioning textures (i.e. changing from smooth purees to chunky purees to soft foods to table foods, etc). T ransition from bottle to sip cup, etc F ood aversions/ Behavioral feeding problems Oral motor weakness and/or oral motor coordination issues (i.e. difficulties with oral motor control of bolus) P osture/Positioning S ensory Issues-Body A daptive Equipment S elf Feeding B reastfeeding Patient has never eaten by mouth ** Outpatient oral-motor/feeding evaluations are to be done by a Feeding Therapist (which may be either OT or Speech) Outpatient Video Swallow Study Child has the following problem(s): Gagging/choking on solids after foods have been cleared from mouth (feeling like foods are stuck “in throat”) C hoking/coughing while drinking liquids Sudden increase in frequency of colds; bronchitis/ pneumonia/ respiratory infections P rior history of aspiration/ swallow dysfunction S ignificant medical history – Patient with Trach/vent, TEF (tracheoesophageal fistula repair), etc. would need a VSS prior to beginning therapy to determine safety of swallow. ** Video Swallow studies are completely jointly by an Occupational Therapist, Speech-Language Pathologist and Radiologist. If a patient fits any of these criteria, schedule an Oral Motor/Feeding Evaluation or Video Swallow Study by calling 722-2200 9594 Cleft Palate: Feeding Your Baby The palate, or the roof of the mouth, is made of bones and soft tissue. The palate separates the mouth from the nose. A cleft palate is an opening in the bones and soft tissue. This open space in the palate makes it hard for your baby to suck from a bottle or breast. Here are some ways to help your baby feed. Supplies for Feeding Your Baby Feeding a baby with a cleft of the palate may not be easy at first. Most babies with a cleft of the palate may not be able to breast feed. They are not able to create the suction needed to express the milk from the breast. You can pump breast milk and put it in a bottle when your baby is not able to breast feed. You can still place your baby at the breast for non-nutritive sucking, which can be satisfying to both you and the baby. Several types of nipples and feeders can help you feed your baby. You may need to try more than one kind of bottle and one kind of nipple before finding the best one for your baby. The nurses will work with you until you are comfortable feeding your baby. Feedings will become easier as your baby grows. Examples of Feeding Systems The Mead-Johnson cleft lip/palate nurser: This bottle is soft. Any nipple can go on this bottle. You may prefer to use an orthodontic nipple (NUK). Squeeze it gently using a pulsing rhythm while the baby is sucking to help your baby drink (Picture 1). Picture 1 Mead Johnson Cleft Palate Nurser with NUK nipple SpecialNeeds Feeder®, also known as the Haberman Feeder™: This nipple has three flow rates: slow, medium and fast. It fits a regular bottle. It has a one way chamber to adjust the flow rate. Gently squeeze the nipple to help your baby suck (Picture 2). Picture 2 Haberman Feeder HH-I-21 8/84, Revised 2/13 Copyright 1984, Nationwide Children’s Hospital Cleft Palate: Feeding Your Baby Page 2 of 3 Examples of feeding systems, continued Pigeon Nipple: The Pigeon Nipple fits on any bottle. The nipple has a soft side and a hard side (Picture 3). The hard side faces up and the soft side sits on the baby’s tongue. There is a notch (air vent) in the nipple that points up toward the nose during feeding. The baby munches to get the fluid out of the bottle. You may need to cut a larger hole in some nipples using the cross-cut method. This helps the milk flow and keeps your baby from getting too tired during feeding (Picture 4). Picture 3 Pigeon Nipple How to Feed Your Baby Here are some tips for feeding: Cuddle for a few minutes before starting to feed. This will help you both relax and make feeding time more pleasant. Hold your baby in an upright position on your lap, tilted back just slightly (Picture 5). This helps him or her swallow. It will also help keep the milk or formula from flowing into the baby’s nose or middle ear. Picture 4 A cross-cut nipple. Rub the nipple of the bottle on his lower lip to get the nipple into his mouth. This starts the sucking reflex. Burp your baby often (after every 1/2 to 1 ounce) since he may swallow air during feeding. Try to finish the feeding in 30 minutes so he does not get too tired. You may give a pacifier to your baby. Remember, he may have trouble holding it in his mouth. If you put baby to bed after the feeding, place him on his back or side. You may also raise the head of the crib about 6 inches if the baby spits up when he burps. This helps keep the formula in the stomach. It also helps to keep formula from flowing into the middle ear. Picture 5 Hold your baby As your baby gets older, he will need more than formula. upright when feeding. Be sure to ask the doctor when you can give cereal, fruits and vegetables to your baby. Also ask about teething biscuits and finger foods. Cleft Palate: Feeding Your Baby Page 3 of 3 Mouth Care After each feeding: Give your baby one half ounce of water to rinse his mouth. Gently clean the nostrils with a twisted piece of cotton if needed. Other Advice A baby with a cleft palate is more likely to get ear infections. Watch for these signs of infection: Fever Breathing faster than usual Fussiness Pulling at ears Turning head side to side No desire to suck When Will My Baby Have Surgery Your child will have surgery to repair the cleft palate when he is about one year old. Talk to the doctor about surgery. When to Call the Doctor Call your child's doctor if your baby: Is not gaining weight. Has a lot of gas or discomfort. Often spits up. If you have any questions, be sure to ask your doctor or nurse, or call 614-722-6299. You can find more information about feeding on the web site of the Cleft Palate Foundation: www.Cleftline.org. Passy-Muir Speaking Valve For a Tracheostomy Tube The Passy-Muir speaking valve is a small device that attaches to your child’s tracheostomy (trach) tube. It allows your child to make sounds and use speech. A speaking valve allows your child to breathe in through his trach tube. After he or she inhales, the speaking valve closes. Air is breathed out (exhaled) up through the vocal cords, then through the mouth and nose. This allows your child to produce sound (Picture 1). A child who needs to be on a ventilator may use a speaking valve. Talk to your child’s healthcare provider to find out if he is able to use a speaking valve while on the ventilator. Ventilator settings may need to be adjusted so that he can use a speaking valve. Your child needs to be assessed to see if he or she is able and ready to use a speaking valve. Picture 1 Inhaled air is exhaled Evaluation for PMV Use through the vocal cords, mouth and nose to allow sound. At Nationwide Children's Hospital, an advanced practice Nurse (APN) tests your child to see if he or she has enough airflow around his trach tube to safely use a speaking valve. This test will be done either while your child is in the hospital or at an outpatient clinic visit. If your child is in the hospital during the evaluation, a speech therapist or respiratory therapist may also see him. When your child uses the speaking valve for the first time, the APN and speech therapist will observe him for signs of difficult breathing. If your child can safely use the PMV, the speech therapist will closely observe his use of the device for 3 to 5 days while he is in the hospital. As your child uses the PMV successfully, his time using it will be increased. If your child receives the PMV during a clinic visit, the APN will observe him for signs of difficult breathing. If your child does well, you will be taught how to use the PMV. It is important that all caregivers understand the risks and benefits before the child uses the speaking valve. You will be taught what problems to watch for when your child wears the speaking valve at home. HH- II-194 3/04, Revised 8/11 Copyright 2011, Nationwide Children’s Hospital Passy Muir Speaking Valve Page 2 of 3 Wearing a Speaking Valve The speaking valve may be placed only on an uncuffed trach tube, or a cuffed trach tube with a completely deflated cuff. Your child may wear the speaking valve only while awake. An adult needs to observe him for difficulty breathing or signs of distress and remove the valve if needed. What to Watch for When Your Child is Wearing the PMV Frightene d look Flared nostrils Pale skin Bluish nail beds Skin pulls in on neck and chest Rapid belly breathing Picture 2 Some signs of respiratory distress. Watch for signs of increased effort in breathing such as: faster rate of breathing skin pulling around neck or ribs more pale skin color than normal, especially bluish color around the mouth Your child’s healthcare provider may provide more specific symptoms to watch for if your child is on an apnea monitor or pulse oximeter. If it is harder than usual for your child to breathe, or there are other signs of respiratory distress, (Picture 2) remove the speaking valve immediately. A child using a speaking valve should be medically stable. Your child may need to stop using the speaking valve while he is sick. Restart its use after he returns to normal health. Passy Muir Speaking Valve Page 3 of 3 Secretions and Suctioning Suction your child as needed. He may need suctioning before putting on the PMV. Some children may need periodic suctioning while using the PMV. A benefit of the speaking valve is that it encourages the patient to clear his own secretions. This reduces the need for suctioning. Ask your child’s care provider about suctioning recommendations for your child. Cleaning the PMV Swish the PMV in a mild, fragrance- free soap Use warm, not hot water Rinse the valve completely with water Allow the valve to air dry before placing in the storage container Do not use heat to dry it Do not use any harsh soaps, peroxide, bleach, vinegar, alcohol, brushes or swabs on the device The PMV usually lasts several months. If it becomes sticky, noisy, or it vibrates, a new one may be needed. Benefits of a PMV A PMV may Improve your child’s speech and tone Improve your child’s swallowing Improve secretion management Improve sense of smell and taste Help with infection control Assist with ventilator weaning Assist weaning from a trach tube (decannulation) Improve quality of life Improve overall development Enjoy your time with your child while he is using the speaking valve. Talk to your child’s speech therapist or healthcare provider if you have any questions. Videofluoroscopic Swallow Study (VFSS) The oral motor evaluation (OME) and videofluoroscopic (VID ee oh floor oh SKOP ick) swallow study (VFSS) is a special test that shows how safely your child can swallow food and liquids. How to Prepare for the Test Explain to your child what will happen. Use words he or she can understand. Bring your child’s bottle, spoon, or cup. We only stock a small variety of sip cups, bottles and nipples. There is no need to bring any liquids for the study. If your child is a picky eater, or has food allergies, bring food that he or she will or can eat. You may give medicine to your child at any time before the test. You MUST bring the child’s insurance card and a photo ID card of the caregiver who is present during the study. If you do not have legal custody of the child you MUST bring written permission to attend this test and receive any test results. Please do not give your child food or drinks: After 6:15 am After 11:15 am HH-III-80 Revised 10/14 For Outpatient Use Only Child’s Name: _____________________________ Appointment Time Please come 15 minutes before your time to register. Date:_________________________ Check in time: _________________ Appointment Place Bring your child to: Nationwide Children’s Hospital Crossroads Registration. Follow the Blue Path to the Crossroads Lobby of the main hospital building. 700 Children’s Dr. Columbus Phone: (614) 722-3975. Westerville Close-to-Home Center Registration Desk. 433 N. Cleveland Ave. Westerville Phone: (614) 355-8300 Please Note: Patients who are more than 30 minutes late for their appointment will need to be rescheduled. Copyright 1992, Nationwide Children’s Hospital Videofluoroscopic Swallow Study (VFSS) Page 2 of 3 How the Test Is Done Your child will sit in a chair that looks like a car seat (Picture 1). He or she will usually be fed in the same feeding position that you use at home. The Occupational Therapist (OT) and the Speech Language Pathologist (SLP) or the doctor may also want to watch your child eat in other positions. Parents and caregivers may watch the test while it is being done. Other children and pregnant women are not allowed in the test room. They should not be exposed to the x-ray. Picture 1 Child having a videofluoroscopic swallow study. The study is done in the Radiology Department by a radiologist, an SLP and an OT. Food and liquids used during the test will be mixed with barium (BARE ee um). Barium makes the food and liquid show up on the X-ray screen so the doctor, the OT and the SLP can see how well your child chews and swallows. The barium may make the food taste a little different. Your child may be given several types of food and liquid during the test. There will be a large X-ray camera on one side of your child and a large X-ray table on the other side of him (Picture 1). When the X-ray machine is turned on, it will make a clicking noise. The camera will record how your child eats and drinks. The doctor, the OT and the SLP will watch how the muscles in your child's mouth and throat move the food and liquid when the child is drinking, chewing and swallowing (Picture 2). The entire process usually takes about 2 hours. It does not hurt your child. If you have any questions during the test, please ask the radiologist or the therapists. After the Test Opening of Eustachian tube Hard palate Adenoids Upper jaw Tongue Soft palate Lower jaw Epiglottis Esophagus (food pipe) Cartilage Wall of pharynx Larynx (voice box) To the lungs To the stomach Picture 2 Inside a child’s mouth and throat. Videofluoroscopic Swallow Study (VFSS) Page 3 of 3 Your child will be sent home with the first of the findings and recommendations. It takes 24 to 48 hours for the full report to be completed. Your child's doctor will receive the test results and will discuss them with you then. If necessary, we will teach you about the foods and liquids that are recommended for your child. You may notice a small amount of white barium in your child's bowel movements after the test. (It may look like chalk.) This will go away as the barium moves all the way through the bowels. If you have questions before the test or need to change the appointment, please call: Nationwide Children’s Hospital Speech Pathology Department at (614) 722-3975. How and Why to Thicken Liquids Some children have trouble swallowing. This is called dysphagia (dis FAY geh ah). Children with dysphagia need to have their food and drink changed so they can safely eat and drink. If your child has dysphagia, you may need to thicken the liquids your child drinks. Thickened liquids move more slowly than thin liquids. This gives your child extra time to control the liquid while swallowing. This may help protect the airway. How to thicken liquids If your child is under the age of 12 months it is recommended that you use infant cereal to thicken liquids. DO NOT use infant cereal in breast milk. Breast milk breaks down the cereal and it does not remain thickened. If you have questions, talk to your child’s doctor. Use measuring spoons to figure amounts. Do not use regular kitchen spoons. Nectar Thick: Use 1 ½ teaspoons of dry infant cereal (rice, barley, oatmeal, mixed) for EACH ounce of formula. Infant cereal must be ground up or pulverized. Do NOT use flake cereal. Examples: 3 ounce bottle = 4 ½ teaspoons infant cereal (1 ½ Tablespoons) 4 ounce bottle = 6 teaspoons infant cereal (2 Tablespoons) 6 ounce bottle = 9 teaspoons infant cereal (3 Tablespoons) Honey Thick: Use 2 ½ teaspoons of dry infant cereal (rice, barley, oatmeal, mixed) for EACH ounce of formula. Infant cereal must be ground up or pulverized. Do NOT use flake cereal. Do NOT give real honey to children under 1 year old. Examples: 3 ounce bottle = 7 ½ teaspoons infant cereal (2 ½ Tablespoons) 4 ounce bottle = 10 teaspoons infant cereal (3 Tablespoons + 1 teaspoon) 6 ounce bottle = 15 teaspoons infant cereal (5 Tablespoons) HH-IV-105 10/13 Copyright 2013, Nationwide Children's Hospital How and Why to Thicken Liquids Page 2 of 4 Natural nectar Examples of liquids that are naturally the thickness of nectar are: Buttermilk Tomato juice Peach and apricot nectars (often found with Hispanic foods at the grocery store) Thickening liquids naturally If your child is over the age of 12 months and is not at risk for allergies you may try the following natural ways to thicken: Add milk to yogurt or pudding. Add the liquid slowly and stir to prevent clumping. Mix juice with baby food or blended fruits. Mix flavored or non-flavored gelatin with juice in a blender. Add bread crumbs, potato flakes, crushed crackers, or pureed meats to stews and soups. Use these recommendations once you are familiar with using infant cereal or artificial thickener. Tips for thickening: Shake hard to mix the cereal and liquid well. Thicken contents of each bottle just before feeding. The formula will keep getting thicker as it sits. Infant cereal does not mix well with breast milk. The enzymes in breast milk break down the cereal. If you would like to keep breast feeding or using expressed milk in a bottle, talk to your child’s doctor. Check the nipple during the feeding to make sure the cereal has not clogged the nipple. You may need to roll the nipple with your fingers or clean out the clog. Important considerations Talk with your child’s doctor about how to thicken liquid medicines. Some foods melt to a thin liquid and must be considered a thin liquid (such as popsicles, ice cream and Jell-o). Speak with your child’s doctor or registered dietitian if you have questions about how these changes may affect the amount of liquid and how many calories your child is getting. Continued on page 3 How and Why to Thicken Liquids Page 3 of 4 Important considerations, continued You may need to change or modify your child’s bottle nipples to make sure the thickened liquids are getting through. Talk with your child’s doctor and SpeechLanguage Pathologist or Occupational Therapist before you make any changes. Let your child’s doctor know as soon as possible if the child is: Not taking the amount of formula he should be More irritable Having problems with constipation Not gaining weight as expected Having problems with coughing or choking during feeds Artificial thickeners Do not use artificial thickeners unless your child is over 12 months of age (this is the corrected age for your child. If you have questions about corrected age, ask your child’s nurse or doctor.) Follow manufacturer’s thickening instructions on the can or packet of thickener. See end of document for a list of thickeners and how and where to purchase, as well as age restrictions. Where can I buy artificial thickeners? Several name brand thickeners can be found on the market. Follow each manufacturer’s directions exactly. You can get artificial thickeners at your local pharmacy. You can also order the thickener online or by phone. Containers of juice, milk and water pre-thickened to either nectar or honey consistencies are available also. Simply Thick www.simplythick.com 1-800-205-7115 Can be used with breast milk as long as the child is over 12 months corrected age Simply Thick packets can be purchased individually or in bulk; order online or via phone Thick-It www.thickitretail.com/wheretobuy.aspx 1-800-333-0003 Thick-It instant liquid and food thickener can be ordered at the following pharmacies: Walgreens, CVS, and Rite Aid Thik & Clear www.nutra-balance-products.com/nutrabalance_products_thickclear.php 1-800-654-3691 Nutra Balance. Packets can be purchased individually or in a case. How and Why to Thicken Liquids Page 4 of 4 THE FOLLOWING THICKENERS SHOULD ONLY BE USED FOR CHILDREN OVER THE AGE OF 3. Thicken-Up and Thicken-Up Clear TAD Enterprises www.tadenterprises.com 1-800-438-6153 Thicken-Up can be purchased individually or in cases. You may also purchase pre-thickened juice, milk or water by the case. Nestle Nutrition www.nestlenutrition.com/departments/therapeutic-nutrition/swallowingdifficulties/resource-thickenup-instant-food-thickener 1-888-240-2713 Thicken-Up can be purchased individually or in cases. Walgreens www.walgreens.com 1-800-925-4733 Thicken-Up can be purchased by the case online and individually in stores. Thick & Easy www.homecarenutrition.com 1-888-617-3482 Thick & Easy Instant Food Thickener can be purchased in multi-paks. You may also purchase pre-thickened beverages and foods. Special Instructions _______________________________________________________________________ _______________________________________________________________________ _______________________________________________________________________ _______________________________________________________________________ _______________________________________________________________________ _______________________________________________________________________ _______________________________________________________________________ _______________________________________________________________________