Featuring Bob Woodruff `s Story of Recovery
Transcription
Featuring Bob Woodruff `s Story of Recovery
RainbowVisions A Quarterly News Magazine for Acquired Brain Injury Professionals, Survivors and Families www.rainbowrehab.com Fall 2007 Rainbow Rehabilitation Centers, Inc. Volume IV No. 4 Featuring Bob Woodruff’s Story of Recovery Lee Woodruff and ABC Producer Vinnie Malhotra give their first-hand account of Bob Woodruff ’s tragic accident and recovery. Clinical News on Returning to Work after a traumatic brain injury. What’s News in the Industry D Life Under PIP Choice By Bill Buccalo, President id you ever wonder how choice of coverage in Michigan’s Auto No-Fault system would affect auto accident victims? Here’s a hypothetical scenario that may shed some light. PIP Choice of a 20-year-old Driver When Michael landed his first steady job, he purchased a car and auto insurance. The insurance agent told him he could save $25 every six months ($50 per year) if he opted for the $1 million personal injury protection (PIP) limit on medical benefits. One million dollars sounded like a ton of coverage, and he could use the 50 bucks, so he chose that option. A couple of months later, Michael was hit by a car. The driver of the other car ran a red light and crushed the driver’s side of Michael’s car. It was a horrific accident and Michael sustained a catastrophic brain injury. After a three-month hospitalization (including a coma), multiple surgeries, and a year and a half of aggressive rehabilitation, medical experts predict that Michael will never live independently. He will require ongoing care, supervision around the clock, assistance with activities of daily living, medication management and ongoing medical appointments. Michael is living in a community-based home for people with brain injury. It is expected that he will require this type of specialized service for the remainder of his life. It is projected that Michael will most likely live to the “normal” 78 years of age. As a result of the brain injury, Michael has both significant physical and cognitive limitations. He uses a walker for short distances and a wheelchair for longer distances. He tires easily and must depend on caregivers for all transportation needs. Due to the brain injury, Michael cannot control his temper and sometimes becomes violent causing physical damage to people and property. As a result, he requires the help of individuals specially trained in dealing with these types of behaviors. Michael is still quite well aware of who he is, where he lives and what he wants. He loves to visit with family, attends music concerts (he likes hip hop and modern rock), enjoys socializing and pursues some hobbies. Michael will never work competitively but likes to volunteer in the community when possible. Michael’s brain injury treatment facility, along with medications, medical equipment, various physician services, etc., averages about $15,000 per month. In addition, these costs are expected to rise at a rate of 2.5 – 3.0 percent per year into the future. Michael’s Projected Lifetime Care Costs $15,000/month, 2.75% Inflation, 58 years $25,025,000 Funds Available for ‘Lifelong Care’ ($ 1,000,000) Michael chose the $1 Million limit instead of ‘Unlimited’ Shortfall $24,025,000 Premium Dollars Saved on the Insurance Net Shortfall (Costs shifted to family or to state Medicaid) ($ $24,024,950 In the case of a catastrophic accident involving (fictitious) Michael, an extra $50 could have provided him an additional $24,024,950 for necessary services over the remainder of his life. Instead, he ran out of coverage before his 26th birthday. There are thousands of people in Michigan living with similar injuries due to automobile accidents. Auto No-Fault (PIP) coverage providing funds for catastrophic life-long care is important. We cannot let news reports or legislators oversimplify and effectively dismiss the issues facing the large population of traumatic brain injury survivors, their families, and the community. Implementation of lower PIP options in Michigan would be a disservice to all Michigan residents. t House Bill 4702 was introduced May 2, 2007, by Representative Joe Hune, and referred to the House Insurance Committee. This proposed legislation may be heard by the House Insurance Committee this summer or fall. The bill would allow Michigan drivers to select lower levels of personal injury protection. As described in the story above, this choice would be disastrous for many, as even $1,000,000 is quickly spent in caring for those who are severely injured. We encourage you to contact your representative and senator in Lansing regarding the negative impact HB 4702 would have on TBI survivors, families, the Medicaid system and the state as a whole. 1 RainbowVisions 50) www.rainbowrehab.com FA L L On the Cover Table of Contents This issue of RainbowVisions RainbowVisions Survivors and Families for Acquired Brain Injury Professionals, A Quarterly News Magazine Centers, Inc. Volume IV www.rainbowrehab.com Fall 2007 Rainbow Rehabili tation No. 4 Recovery Featuring Bob Woodruff’s Story of Vinnie Malhotra Lee Woodruff and ABC Producer’s tragic accident and recovery. give their first-hand account of Bob Woodruff Clinical News on Returning to Work after a traumatic brain injury. 2007 follows the recovery of ABC INDUSTRY NEWS Journalist Bob Woodruff. What’s News in the Industry – Life under PIP choice 1 ABI Clinical News – Returning to work after a TBI 3 IED exploded near the tank Perspective from a Professional – Special Needs Trusts 7 he was riding in. His wife Lee Guardianship 8 and ABC Producer Vinnie Technology Corner – Lee Silverman Voice Treatment 9 While on assignment in Iraq, he sustained a TBI after an Malhotra, give their firsthand account of Bob’s injury and recovery. Cover photo of Bob & Lee Woodruff taken by Cathrine White. AACBIS – Post-Traumatic Stress Disorder 14 Medical News – Complications of Type 2 Diabetes 15 Industry Conference & Event Calendar 29 TBI SURVIVOR STORIES Survivor Corner – An Interview with Lee Woodruff 5 Survivor Corner – An Interview with Vinnie Malhotra - ABC Producer 12 From Rainbow’s Residential Homes – Gabe Mussehl 21 Executive editor & designer – Kimberly Paetzold Assistant editor & staff writer – Kirstin Olmstead Staff photographer – Heidi Reyst Please e-mail questions or comments to: [email protected] INSIDE RAINBOW Rainbow Community Education 17 Rainbow Client Activities – Summer 2007 22 The Last Word – Staff of Professionals 33 Employee of the Season – Winter 2007 34 After School & Saturday Day Programs To register or for more information call 1.800.968.6644 E-mail: [email protected] • www.rainbowrehab.com RainbowVisions 2 Clinical News OT AND SLP THERAPY PERSPECTIVE Returning to Work After a TBI By R Angie McCalla, MS, CCC-SLP, CBIS - Speech Language Pathologist & Laura Konrad, OTR, NDTC, CBIS - Occupational Therapist ecent research in traumatic brain injury (TBI) rehabilitation has focused on measuring outcomes, specifically the impact rehabilitation has on a survivor’s quality of life. Because there is a clear link between financial status and self-esteem, vocational success has become one of the most important outcomes measured in brain injury rehabilitation and research (Jacobs, 1997). However, it is often difficult for individuals with brain injuries to achieve vocational success. Many survivors suffer with significant psychological, cognitive and physical deficits that negatively affect their ability to seek and maintain employment. Research points to the importance of addressing these deficits using a supportive rehabilitation team approach focused on assessing the wide range of physical, cognitive and functional variables (Vandiver, et al, 2003). Factors Affecting Employability Difficulties with physical changes, thinking abilities (such as problem solving and memory), behavior and social skills can delay the success of post-acute treatment. These issues must be addressed in order to promote and ensure employability. Addressing these challenges with occupational and speech-language pathology sessions can promote a greater ease of transition into the work place. This is accomplished through the development of foundational skills that are easily generalized. Physical Changes Physical deficits, if they exist, are always the most obvious or noticeable. Unlike subtle cognitive impairments, physical deficits frequently become the central issue. They often are the result of damage to the brain centers that control motor functions rather than by direct injury to the extremities. Deficits may include loss of motor coordination, spasticity (muscular hypertonicity with increased tendon reflexes), poor balance, an inability to walk unassisted, and a loss of eye-hand coordination. Hemiplegia (paralysis affecting 3 RainbowVisions one side of the body) and hemiparesis (weakness of one side of the body or part of it) may further complicate employment issues, particularly when these conditions affect the use of the dominant hand. Cognitive Changes Individuals with brain injury may exhibit problems in a variety of cognitive areas such as: • basic arousal • alertness • attention • concentration • memory • abstract thinking & conceptualization • planning • organizing • problem solving • judgment They may also have difficulty processing verbal and visual information. Arousal Hallmark signs of arousal problems include an inability to attend to the environment, a lack of (or reduced) alertness; an inability to accurately observe environmental details and occurrences; and a severely slowed capacity for information processing. People with arousal impairments are www.rainbowrehab.com slow in reacting and responding to others and are highly susceptible to fatigue following cognitive or physical exertion (Western Neuro Sensory Stimulation Profile, 1989). Attention and Concentration Impaired attention and concentration abilities can exhibit as distractibility. This may be a response to interference either by external or internal stimuli. For the person with brain injury, the inability to “screen out” external noises makes concentration difficult. Environmental noise is found in most work settings, such as conversation, office traffic, humming of machines and the general related “buzz” of activity. If external noise can be controlled or minimized, concentration usually improves. For the person with brain injury, another possible source of distracting noise is internal conversation, which takes place in the mind. Intrusive inner thoughts can limit productivity and are exceedingly hard to manage. They become visible (observable) only when they interrupt performance (Sohlberg and Mateer, 1989). Memory Loss of adequate memory function and the inability to immediately recall new information (anterograde amnesia) are common symptoms following brain injury. While significant improvement in memory function may be noted during initial recovery, this deficit is often observed in varying degrees for most survivors. Inadequate memory function is one of the primary complaints reported by people who have sustained a brain injury. Often it is their social environment that causes them to develop this awareness. The reprimands of others for missed appointments, appliances left on or bills unpaid compel them to acknowledge that they forget important things. However, memory impairments can be compensated for by a variety of memory aids (Green, Stevens, & Wolfe, 1997). Practically all persons with brain injury retain a clear pre-injury memory of FA L L 2007 Predicting Employability Predicting the employability of an individual following a brain injury is a complex process. Many variables affect productivity outcomes. Reported unemployment rates vary widely, from 10–99 percent (Cifu, 1997; Gollaher, 1998). Most samples show about a 30 percent return to employment; although a 2003 study by Kreutzer and his colleagues found in that 42 percent were employed and 34 percent were stably employed three years after their injury date. Those who were unemployed were most likely to be members of ethnic minority groups, non-high school graduates, unmarried, unable to drive their own vehicles and had severe impairments (2003). In 1998, Gollaher and colleagues reported that individuals with higher education levels and less disabilities were most likely to be employed at one to three years post-injury. Sherer and associates (1999) found that individuals with no history of substance abuse were eight times more likely to be employed at two years post-injury. TBI Model Systems researchers established that early neuropsychological testing appeared to be useful for predicting outcome after injury. Boake and colleagues (2001) noted that early completion of neuropsychological tests (completed less than two months from injury) with scores in the normal range increased the likelihood of a productive outcome by 40–130 percent. Further, early neuropsychological test results were predictive of productivity outcomes one year post-injury Scherer et al 2002). At one year follow-up, 43 percent of the 388 participants were classified as productive. Scherer and fellow researchers also found in a subsequent study (2003), that those with more accurate self-awareness were nearly twice as likely to be working as those with less accurate self-awareness. Continued on page 23 RainbowVisions 4 Photo by Cathrine White Traumatic Brain Injury Survivor Corner AN INTERVIEW WITH I Lee Woodruff Interview by Kimberly Paetzold, Editor n January, 2006 Bob Woodruff was promoted to the position of “World News Tonight” anchor along with Elizabeth Vargas, replacing the late Peter Jennings. This new dual-anchor setup was designed to keep one in the anchor chair and the other on location reporting world events. Two days before President Bush’s State of the Union address, Bob was in Iraq covering a story when he and his cameraman Doug Vogt were hit by an improvised explosive device (IED). Both men suffered traumatic brain injuries (TBIs). Lee Woodruff, Bob’s wife, was kind enough to interview with “RainbowVisions.” Here’s what she had to say about her husband’s recovery and their future plans. Hello Lee, thank you so much for your time. Your husband has had a remarkable Pictured above: Bob and Lee Woodruff with their four children – twin daughters, Nora and Claire (top), son, Mack and daughter, Cathryn. recovery since incurring a severe brain injury in Iraq on January 29, 2006. Bob isn’t receiving formal therapy at with words. Since Bob’s initial recovery, According to information published in this time, but he still sometimes fishes for what type of projects has he worked on your book, “In an Instant,” Bob’s focal a word. The more fatigued he is, the more and what is he currently doing? point of injury was in the left temporal you see it. He falls apart much more easily Earlier this year both of us were on lobe, potentially affecting his speech and at night. I noticed that when Bob has a lot our book tour and very recently Bob just word recall. I watched Bob in the “ABC of balls in the air, it’s harder for him now. returned to journalism with ABC. He News Special: To Iraq and Back – Bob Overall, I would have to say his recovery is works on stories for “World News Tonight,” Woodruff Reports” (2/27/07). In that miraculous, and he can tolerate quite a bit. “Nightline” and “Good Morning America.” special, his commentary was flawless Most people think he’s perfectly fine. But as He’ll do a series of hour-long specials like – very professional. Also, I had the his wife, I do see everything. the documentary that aired in February – “Bob Woodruff: To Iraq and Back.” opportunity to meet him in person, and he showed very few signs of having ever In your book, Bob wrote about his love He just returned from a trip to Syria been injured. for reporting. He wrote that he viewed covering the refugee story. Currently, there Is your husband still participating in journalism as the perfect career because are a large number of refugees coming active therapy? Could you tell us how he learned about a new subject or story from Iraq into Syria. It’s really sad because he is doing and what challenges he is every day, enjoyed the adrenaline rush there is nothing for them in Syria, but Iraq currently facing? of deadlines and loved marrying pictures is a war-torn country and people want to 5 9 RainbowVisions RainbowVisions www.rainbowrehab.com FA L L 2007 get out. He was covering the consequences and issues associated with the refugees. One of the issues he’s investigated is the young Iraqi girls coming into Syria who are turning to prostitution because there is no other way for them [and their families] to make money. It breaks the parents’ hearts, but there is not food for the refugees and nobody wants to deal with them. Because there are different tribes within these groups, it is a difficult situation. Bob will continue to cover brain injury stories. But what has been really great is to see him get back to journalism as a whole, which is what he is now focusing on full-time. He recently went to Cuba to see if he could get an interview with Fidel Castro, which didn’t work out. But he did cover what’s going on there and what the political future might be going forward. That was really interesting for Bob – he’s always wanted to go to Cuba. Does he have help from his producer or other staff assigned to his projects? Bob has a producer and a camera person, but all of that is standard. There are some differences following his injury. He gets more tired and probably needs more help with his writing compared to what he used to need. I think his hours are going to have to change because he requires more rest. For the most part, his recovery really is miraculous, and I am amazed that he has stayed pretty true to how he has worked in the past. Pictured above: The tank Bob Woodruff was traveling in just seconds before an IED exploded. ABC cameraman Doug Vogt took the picture as he and Bob were preparing to report. The Iraqi solder pictured reportedly lost his hand in the attack. Taji, Iraq January 29, 2006 Two days before President Bush was scheduled to deliver his State of the Union address, Bob Woodruff’s ABC News group – producer Vinnie Malhotra, cameraman Doug Vogt and soundman Magnus Macedo – wanted to get a first-hand look at the U.S. Military hand over of security to the Iraqi forces. The group was looking for concrete examples of U.S. and Iraqi troop cooperation, and the American troops felt that Taji was a good example. The morning of January 29, the military was scheduled to take the ABC group to a local water treatment plant. Now under Iraqi security, the plant provided fresh water for the Is ABC providing more supports for Bob out in the field? It’s really early in the process, maybe too early to tell. Bob is trying to get his group together and talking about the specials they are going to cover. He is still just getting his feet on the ground, so time will tell. I will have more to say in six months or so, but for now, so far so good. town outfitted with helmets and body armor. The news group decided to ride in an Iraqi tank to get a good look at what was happening from the perspective of the local troops. After mounting a camera on the front of the tank, all four newsmen along with an Iraqi interpreter climbed inside, unaware the tank was to take the lead position in the convoy. Hoping to do a stand-up interview through the tank hatch, Bob kept moving back and forth from inside the tank to outside trying to help the soundman figure out how to compensate for the tank’s loud roar. Magnus and Vinnie remained inside, and after traveling only three miles, they approached an area (pictured above) where insurgents often positioned themselves. The interpreter advised both Doug and Bob to get inside the tank. Suddenly, there was a horrific blast – A band of Iraqi insurgents detonated a remote- I would like to ask a question regarding controlled IED. Both Doug Vogt and Bob Woodruff suffered traumatic brain injuries. your personal outlook. In 1994, you lost For a first hand account of the incident, go to page 12 – Interview with Vinnie Malhotra. Continued on page 11 RainbowVisions 6 Perspective from an Industry Professional that leaves a share of their estate to a new special needs trust for the benefit of their son or daughter. Sometimes D ADVANTAGES OF A parents also find it helpful to set up Special Needs Trust an additional, but separate living By (intervivos) special needs trust in their Daniel Blauw, Attorney at Law will. This is done to facilitate gifts or bequests by other relatives or to begin building up a trust fund before the aniel Blauw lives in Grand Rapids, parents die. Michigan. As a lawyer in solo practice, Both of these third party special needs he primarily helps families across Michigan medical care related to a long-term trusts are quite flexible – even revocable. set up special needs trusts and arranges for disability. People with and without no- They can leave a remainder interest to any services when they have a family member fault insurance coverage must learn other party or charity without a Medicaid with life-long disabilities. He has served as quickly about Medicaid, Social Security payback provision, when the loved one Director of Creative Housing Services at and Supplemental Security Income (SSI) passes away. These third party special needs Hope Network and as Executive Director disability benefits. The family’s next set trust options have been widely used for the of the ARC of Kent County, an advocacy of questions often involves how to set- past twenty-five years. group for people with disabilities. Daniel is up a special needs trust that will provide a 1980 graduate of Valparaiso University some private funds while preserving Self-funded Special Needs Trusts School of Law and a 1977 graduate of governmental benefits. What follows are Third party trusts have one drawback– Hope College. some tips about the use of special needs they cannot be used to shelter assets if trusts. the person with disabilities already holds When a family faces the crisis of a catastrophic injury of a loved one, first there is shock, and then there is In common law legal systems, a trust is an arrangement whereby almost a total submersion into medical money or property is owned and managed by one person (or decision-making. Before long, however, persons or organizations) for the benefit of another. scary questions arise about how to pay for all the increased living costs and How Can I Set Up a Special Needs Trust? the money. Fortunately, federal law in the Start by recognizing whose money will mid 1990s began to allow a person with be funding the trust. A common mistake disabilities to self-fund a special needs trust, is to fail to define who will be funding the even with money that is already “in the trust. SSI and Medicaid programs have one pocket” of the person with disabilities. set of rules for a parent or “third party” For example, an individual with a funded trusts and another set of rules for disability can shelter proceeds from a trusts set up directly by the person with lawsuit settlement or a large lump sum from the disability. As an attorney who helps Social Security in a special needs trust. clients qualify for benefits, I have seen This puts the assets in a “non-countable” many instances where even governmental category and allows the individual to workers apply the wrong rules and preserve governmental benefits. They can incorrectly deny benefits. even shelter funds owned prior to the If parents want to make sure that their injury, such as a house they no longer live adult child’s inheritance will not reduce in, bank accounts and IRAs. his or her governmental benefits, they The federal statute spells out two different should prepare a last will or a living trust types of self-funded special needs trusts. Continued on page 31 7 RainbowVisions www.rainbowrehab.com FA L L 2007 Guardianship Information taken from the National Guardianship Association www.guardianship.org W hen parents have a child with a traumatic brain injury, it is important that they understand their rights and the legal system as it applies to caring for their When a child reaches legal adulthood, guardianship for those with disabilities child. Guardianship is often misunderstood. parents do not automatically remain has little to do with the capacity to handle For example, many people believe the natural guardian. If your child is finances. There are other mechanisms that parents are automatically the legal disabled and over 18, you must seek legal for dealing with financial matters such guardians of their minor children. Legally, guardianship through the courts in order as power of attorney and representative parents are the “natural” guardians of their to decide residence, take care of financial payees for government benefits and trusts. minor children but not automatically the affairs or make medical decisions for him. In addition, some states offer limited legal guardians. A minor child (under 18 All adults with disabilities do not require guardianships, which may give a guardian in most states) needs a legal guardian or a guardian. This process should only be the right to make medical decisions but not conservator when he is orphaned. If a child pursued if a disabled individual’s parents, decisions regarding residence. under 18 inherits property, the parent must doctor, psychologist and/or caregiver all be appointed by the court to become the agree that they are incapable of making guardian, the following information may legal guardian of the estate – They cannot independent and informed decisions. help. (NOTE: Local law and court rules automatically control, safekeep or manage It is a misconception that an individual may be different in each county and their child’s property legally without this who is not able to balance a checkbook state. For specific rules applied to your appointment. is in need of a guardian. In today’s world, circumstances, consult a local professional If you feel your loved one needs a legal elder law advocate or the National Guardianship Association.) Guardianship Guardian of the Person – Cares for the personal needs of the ward Guardian of the Estate – Cares for the property of the ward Plenary Guardianship – Cares for personal needs and the property of the ward. Guardianship Guardianship, or conservatorship, is a legal process that occurs when a person can no longer make or communicate decisions about his/her person and/or property. Appointed guardianship may occur when an individual is in need of legal protection and it is the opinion of the individual’s treating physician (or other caregivers/family/professionals) that they are unable to provide food, clothing or shelter for themselves or mange their own financial affairs. When a court appoints a guardian, they may have the following responsibilities: •Determine and monitor residence Continued on page 32 RainbowVisions 8 ABI Technology Corner N Description Lee Silverman Voice Treatment By The LSVT program teaches patients to “think LOUD” and to focus their efforts on increasing voice volume. Angie McCalla, MS, CCC-SLP, CBIS With intensive treatment and frequent encouragement, patients learn to eurological disorders can often impair consistently increase their voice speech and voice production, making volume. As patients progress in therapy, communication difficult. One therapy, patients suffering from Parkinson’s disease, that has proven effective in treating LSVT is now being used to help individuals the length and complexity of their speech increases as does their volume. patients with neurological disorders, with swallowing dysfunctions, head trauma Practice and feedback begin with a single specifically Parkinson’s Disease, is the and multiple sclerosis. sound to train the patient about the correct Lee Silverman Voice Treatment (LSVT®). Early research studies assessing the volume and the breath support required Based upon nearly 15 years of research impact of LSVT in treating communication to produce increased sound. Training data, this treatment offers the opportunity problems are yielding positive outcomes. moves on to simple and frequently used to consistently improve speech and voice The treatment offers powerful results to phrases so that loudness becomes habitual. production in individuals with neurological patients who previously had very limited Speaking full sentences, reading aloud and disorders and significantly improve their opportunities to improve their speech and engaging in conversation are also part of quality of life. Designed exclusively for voice. the therapy. Repetition and reinforcement are also Medical Illustration Copyright © 2007 Nucleus Medical Art, All rights reserved. www.nucleusinc.com essential parts of the program. Through constant practice, patients learn to “recalibrate” and become accustomed to using a louder voice. Reinforcement from family and others in the community is also important to solidify the treatment gains. Patients practice with tape recorders and use sound pressure level meters for feedback. Currently, the LSVT treatment program requires four one-hour sessions with a qualified therapist each week over the course of a month. In addition, patients are required to complete home exercises for 1-2 hours each day in order for the therapy to be successful. The sessions are always lead by a trained speech-language How the Vocal Cords Work The vocal folds (vocal cords) are composed of twin infoldings of mucous membrane Documented Results stretched horizontally across the larynx. They vibrate, modulating the flow of air being LSVT is the first and only documented expelled from the lungs during phonation (a voiced sound). The vocal vibration is varied efficacious speech treatment for individuals to produce intonation and tone. This is accomplished by varying the pressure of the air column under the glottis as well as the tension in the vocal folds themselves. These actions produce changes in the frequency of vocal-cord vibration, which generates the fundamental pitch of the voice. 9 pathologists certified in LSVT. RainbowVisions with Parkinson’s disease – over 400 have been treated and included in efficacy research studies. Ninety percent of patients studied showed improvements in vocal intensity from pre- to post-treatment. www.rainbowrehab.com FA L L Parkinson’s Disease Approximately 80 percent maintained improvements in volume for 12-24 months post-treatment. Additional published data supports improvements in speech articulation, respiratory excursion, facial expression, communication gesture and neural functioning. LSVT at Rainbow Rainbow Rehabilitation Centers has two speech-language pathologists certified in LSVT: Kerri Torzewski, MA, 2007 Parkinson’s disease is a neurological disorder that impacts the brain’s ability to coordinate muscle function and movement. It can diminish a patient’s vocal effort resulting in volume loss and makes it difficult for them to differentiate between low and normal conversational volume. LSVT makes patients aware that their pre-treatment voice level is too soft and helps them find the correct level for normal speech. Patients are trained to reach the correct volume and to self-correct even when they feel they are speaking too loudly. Pictured below: Human genome view with a focus on PARK9 - one of the genes linked to Parkinson’s Disease. CCC-SLP and Angie McCalla, MS, CCCSLP. Both clinicians were certified in April 2007 and have begun to employ the program with two patients, Jeff Terry and Yaseni Caballero-Amaya. Chosen based on the nature of their speech disorders – low volume and decreased mandibular excursion (movement of the jaw) – both have demonstrated significant improvements. In just three weeks, Jeff’s average length of sustained phonation (audible sound) improved from 11.16 to 17.6 seconds and his loudness (sound pressure level) for functional phrases gained a decibel. Yaseni’s therapy also yielded exciting results. For the past year, she has been unable to sustain voice for greater than a second in spite of consistent breathing exercises and voice training during therapy. family have noted that Yaseni’s improved A recent vocal cord surgery enabled her communication has bolstered her self- to speak just above a whisper, and she confidence and improved her social still struggled to articulate her words. She interactions. depended heavily on an alphabet board in order to communicate with others. Using the LSVT program, her individual Future Research The LSVT Foundation continues to gains have been extraordinary. Her advocate for future research. Research has sustained phonation (audible sound) begun in the areas of multiple sclerosis, levels improved from 1.36 seconds to ataxic dysarthria, swallowing, aging voice, 2.42 with a range of up to 5.91 seconds. vocal fold paralysis, cerebral palsy in Her sound intensity (voice loudness) children and down syndrome. t improved approximately 7 decibels for sustained phonation, words and phrases. These improvements took place in just two short months! Her therapists and The LSVT Foundation is a nonprofit almost exclusively volunteer organization dedicated to preserving the quality of LSVT and facilitating access to this powerful treatment to patients worldwide. The organization also seeks to increase awareness among the medical community and advocate for LSVT. In addition, the foundation educates family members about ways they can help their loved one(s) maintain functional communication while living with the challenges of Parkinson’s disease. Resources LSVT Foundation. (2007). Retrieved July 23, 2007. http://www.lsvt.org/ Cleveland Hearing and Speech Center Fact Sheet RainbowVisions 10 Interview with Lee Woodruff Continued from page 6 I was on familiar ground. I was grieving deficits we were dealing with, I didn’t want over what happened to Bob. to make assumptions, and I didn’t want people telling me what it was going to be a child, and the grief was overwhelming. Did you find this experience to be In your book, you stated, “The journey different than the loss of your child? through that grief prepared me, in some It was different because when you lose So what was it like when Bob woke up? way, for the grief to come.” Could you a child, at least you have your husband to When Bob woke up, his first words explain your thoughts? commiserate with, even though men and when I walked into the room were, “Where I think if you’ve never experienced grief women grieve differently. But when you have you been, Sweetie?” I was thrilled. before in your life it’s a very shocking lose your husband, that’s your life partner; And after that, I took every little step experience. The sudden tragedy takes your and when it’s brain injury, nobody can truly toward recovery as a positive. Of course breath away, and of course you are not tell you how they will recover or what’s I had worries, Bob was missing a lot of ready for it. It completely destroys your going to happen or what it’s going to be words. But just having him awake after five sense of normalcy, and you feel awful for like. You get stuck in limbo. weeks was amazing – for a while, that was a long time after the incident. If you’re like. enough for me. not prepared for that, it is really shocking. During the first few months of Bob’s You tend to feel that the rest of your life recovery, you wrote, “I was living in a Has Bob suffered from depression or will end up that way. The loss of our child fog of optimism.” Was that your defense post-traumatic stress disorder (PTSD)? prepared me because I learned that time mechanism, and did it help you cope? No PTSD, although sometimes Bob gets really does heal – the situation really does Absolutely. I did not want to learn too a little down, but it’s not much different get better, but it takes time as trite and much about brain injury; I didn’t want to from the way he was prior to the injury. He cliché as that sounds. Having gone through get on the Internet, and I didn’t want to hasn’t had the difficulties with depression that experience at the time, I felt like that google brain injury. I didn’t want to read like so many others with TBI. Amazingly, was the worst thing that could ever happen articles or hear stories. Until Bob woke he has escaped much of the worst of that to me. So when Bob was injured, I felt like up from his coma and until I knew what aspect of brain injury recovery. What I do see that’s different is that Bob can get overwhelmed more easily, and sometimes Figure 3 his emotions are more on the surface. What, if any, benefits have come from this tragedy? It’s been a crazy year, and the pace hasn’t slowed down. So, the dishes sit in the sink a whole lot more. But as a family, I think we are more conscious of living in the moment. We are all together and we are all appreciative of life – it’s so precious. The kids are doing great. They get a little sad when Bob is out of town, but they are not afraid. What advice would you like to share with spouses going through the same experience? I think you need to hold onto your hope and your faith. Family plays such an Pictured above: A 3-D CT scan of Bob’s face taken January 31, 2006 at the Bethesda Naval Hospital 11 RainbowVisions important role in the healing process. It Continued on page 13 www.rainbowrehab.com FA L L 2007 AN INTERVIEW WITH Vinnie Malhotra Executive Producer at ABC By Kimberly Paetzold, Editor Vinnie Malhotra, an executive producer at ABC, was part of the news team traveling with Bob Woodruff when Iraqi insurgents detonated an improvised explosive device (IED) near the tank in which the news team was riding. Vinnie shares his first-hand account of the terrifying moments that immediately followed the blast. Hello, Vinnie. We greatly appreciate your taking the time to interview with “RainbowVisions.” We interviewed Lee Woodruff on her husband’s rehabilitation and recovery, but we wanted to get your perspective on the actual bombing incident. First, how did you get to know Bob Woodruff and become his producer at ABC? I came to “World News Tonight” as an anchor producer for Peter Jennings. Then 9/11 happened, and our lives were turned upside down. I started going overseas covering stories in Afghanistan, Pakistan and eventually Iraq. Even though I was the producer for Peter Jennings, Bob Woodruff and I ended up working on various projects together. After Peter got sick, he had to stop working and that’s when I started to work more with Bob. We went to Rome together to cover the death of Pope John Paul II and the election of the new pope. When it was officially announced that Bob was going to be the anchor of “World News Tonight” along with Elizabeth Vargas, we ended up on the road together non-stop. You were with Bob Woodruff and Doug Vogt inside an Iraqi tank when both were hit by a roadside improvised explosive device. Could you tell us what happened? Usually when we report, Bob is talking directly to the camera explaining what is going on. Bob was going to talk about the corridor, this road we were traveling down, and how the Iraqi’s had taken over the security responsibilities from the American troops. It was an example of how things were starting to work with the security forces in Iraq. Bob and Doug Vogt [the cameraman] were standing up through the hatch so I could see Bob from the waist down. I was in the tank with our soundman, Magnus Macedo, and that is when the IED went off. They were waiting for us, watching the convoy. When they saw four targets [two Iraqi soldiers on the top of the tank along with Bob and Doug] they detonated the bomb remotely. The IED went off in the median of the road on the left side of the tank. It was a homemade bomb made of rocks, pebbles and stones. [The blast] shook the entire tank and Continued on page 19 Pictured above: Vinnie Malhotra in his office at “ABC Nightline” in New York, New York Pictured below Part of the “ABC Nightline” set in New York City Pictures & interview by Kimberly Paetzold RainbowVisions 12 Interview with Lee Woodruff Continued from page 11 improve the lives of servicemen – those anywhere if we do not work together. with traumatic brain injuries (TBIs) We also want to advocate so that who were wounded in service to their returning veterans are able to access private definitely takes a will to live and recover, country and their families. TBI is the providers when it doesn’t make sense to but it’s also helping someone heal with signature wound of this war. We are not go to a veteran’s hospital. Many soldiers love and touch. There are so many different only interested in helping those who are from small towns or rural areas and tools that can be used in recovery. sustain severe injuries like Bob, but those don’t have reasonable access to therapy You have to let yourself acknowledge with mild brain injuries suffering with or supports. I am actually going down that there are bad days because they will depression, post-traumatic stress disorder to Capitol Hill to speak with a group of come. For a while, I had to just live hour to (PTSD), combat fatigue and other stress senators working on bills to help correct hour, not even day by day to get through. disorders. this situation. But anything is possible. We just hired an executive director Will you be working with the Veterans René Bardorf. She has worked with Marines Your family established the Bob Woodruff Administration to accomplish your goals? with brain injuries for a long time. She was Family Fund for Traumatic Brain Injury Yes. We are going to need participation with Marines for Life, an organization that to assist military veterans with cognitive from the U.S. Department of Veteran’s provides transition assistance to Marines rehabilitation and other care needs. Could Affairs as well as from the U.S. Department leaving active service. René is going to help you tell us about this foundation? of Defense. It’s going to have to be a determine what is viable and possible for Our number one mission is to help combined effort. This project will not go this foundation. t Photo by Cathrine White Lee Woodruff Lee Woodruff is a public relations executive and freelance writer. With more than 20 years experience in marketing and public relations, she works with international cosmetic company Benefit Cosmetics and Built NY, a line of home products. Since opening her own business in 1991, she has handled a wide variety of clients from the healthcare and travel industry to electronics and accessories market. As a freelance writer, Lee has written numerous corporate materials, and her articles have appeared in Health magazine, Redbook, Country Living magazine and Family Fun, to name a few. Over the years, she has written articles with a personal slant about family life and the often humorous and poignant moments of being a parent. Currently, Lee is also a contributing editor of Family Fun magazine where she writes about health and travel. She also serves as a spokesperson, appearing on national and regional broadcasts about various topics on behalf of the magazine. Lee and her husband Bob are authors of “In an Instant”– a book about their family’s difficult journey during Bob’s critical injury in Iraq while anchoring a broadcast for ABC News. It is also a story of life, relationship and family. The mother of four children, she lives in Westchester County, New York, with her husband Bob, an anchor/reporter for ABC News. 13 RainbowVisions www.rainbowrehab.com FA L L 2007 AACBIS Corner BRAIN INJURY SPECIALIST Post-Traumatic Stress Disorder & Families By Heidi Reyst, PhD, CBIST Systems Director Most people understand the word “trauma”, but few can define what an individual or family may experience following a traumatic event. Most cases of post-traumatic stress disorder (PTSD), or acute or delayed situational stress, are healable – but the trauma experience can scar an individual and family. PTSD can affect an entire family because it’s an anxiety reaction. For families who have a loved one with a brain injury, anxiety is usually one of the first emotions following the knowledge of the incident. As families attempt to grasp what has occurred, symptoms may appear that are often confused with mourning. It is important to be able to identify symptoms of PTSD. If individuals start exhibiting many of the symptoms listed (see chart below), a counselor should be contacted. It is essential to differentiate between normal mourning and PTSD, as trauma is the precursor to PTSD for some individuals. Recognizing and treating symptoms before they develop into a psychiatric disorder should become a primary concern. t Symptoms of Post-Traumatic Stress Disorder 1. Vigilance and scanning – Constant checking on what is going on beyond normal questions and answers 2. Elevated startle responses – Being overly jumpy when startled and surprised. 3. Blunted affect or psychic numbing – There is a reduction in or of loss of the ability to feel. This may include a reduced ability to bond with others, especially other family members. It is usually a form of distancing in preparation for experiencing more pain. 4. Aggressive, controlling behavior – This form of aggression is not usually from the survivor but from family members. The person acts somewhat viciously to responses from people or to situations. 5. Interruption of memory and concentration – Difficulty concentrating and remembering, even if just told about something 6. Depression – Deep feelings of despondency, exhaustion, negative attitude and apathy toward others. 7. Generalized anxiety – Tension in the body, cramps, headaches, stomachaches, etc. for no physical reason. 8. Episodes of rage – Not mild anger, this refers to violent eruptions to situations or people, often following a minor incident. 9. Substance abuse – In an attempt to reduce stress-related symptoms, the person may seek substances such as alcohol to numb feelings. 10. Intrusive recall – Old and negative memories suddenly appear from the past in the mind. These are the same type of responses that a person experiences during a nightmare, making the person feel very uncomfortable. 11. Dissociative “flashback” experiences – A form of intrusive recall where the person’s mind replays a particular form of action that feels like it is happening now. It is an extremely emotionally charged memory. 12. Insomnia – Difficulty falling asleep or staying asleep. Sometimes the person has experienced nightmares or has reached a level of exhaustion that affects the ability to reach a restful sleep. 13. Suicidal ideation – Thoughts of not wanting to live should their loved one die. The person is at a very low point in life because of what has occurred. 14. Survivor guilt – A common “trade off ” belief where the family member prays for God to take him instead of the loved one. This is a very common reaction when the survivor is a child. RainbowVisions 14 Pediatric Medical News COMPLICATIONS OF Type 2 Diabetes in Children By Vicky Scott, RNC, NP - Nurse Practitioner This is part II of “The Obesity / Diabetes Connection – Overweight kids are at Various treatments and tools for diabetes an increased risk for type 2 diabetes.” A download of the complete article and accompanying list of references, is available at our web site: www.rainbowrehab.com Signs and Symptoms ability to heal and resist infections. Select Education & Publications > Article Type 2 diabetes often develops gradually. Some children with type 2 diabetes have Downloads > Medical and Nutritional> The Signs or symptoms may include: patches of dark, velvety skin in the folds Obesity/Diabetes Connection. • Increased thirst and frequent and creases of their bodies – usually in the urination: As excess sugar builds in the armpits and neck. This condition, called bloodstream, fluid is pulled from the cells. acanthosis nigricans, may be a sign of ype 2 diabetes (formerly referred to This may leave the child thirsty causing insulin resistance. as adult-onset diabetes) is on the rise in them to drink and urinate more than usual. children – largely fueled by the current • Extreme hunger: Without enough Risk Factors obesity epidemic. This increasingly insulin to move sugar into the cells, Researchers don’t fully understand why T some children develop type 2 diabetes and common condition presents special challenges for parents and children alike. It is a chronic condition that affects the Type 2 diabetes can affect nearly way the body metabolizes sugar (glucose). every major organ in the body, Type 2 diabetes in children develops when including the heart, blood vessels, the body becomes resistant to the effects of insulin, a hormone that regulates the nerves, eyes and kidneys. others don’t. It’s clear that certain factors increase the risk: • Weight: Being overweight is a primary risk factor for type 2 diabetes in children. The more fatty tissue a child has, the more resistant the cells become to insulin. The good news is that many children who have absorption of sugar into the body’s cells. It also occurs when the pancreas produces muscles and organs become depleted of type 2 diabetes can improve their blood some but not enough insulin to maintain energy. This triggers intense hunger. sugar levels simply by losing excess weight. a normal blood sugar level. Prediabetes, • Weight loss: Despite eating more than • Inactivity: The less active the child is, the a precursor to type 2 diabetes, is also a usual to relieve hunger, the child may lose greater the risk of type 2 diabetes. Physical concern. Left untreated, prediabetes can weight. Without the energy sugar supplies, activity helps the child control his or her progress to type 2 diabetes. muscle tissues and fat stores simply shrink. weight, uses glucose as energy, and makes There’s no cure for type 2 diabetes, but • Fatigue: If the child’s cells are deprived the cells more sensitive to insulin. there’s plenty that can be done to help a of sugar, he or she may become tired and • Family history: The risk of type 2 diabetes child manage or prevent the condition. irritable. increases if a parent or sibling has type 2 Encourage the child to eat healthy foods, • Blurred vision: If the child’s blood sugar diabetes, but it’s difficult to tell if this is get plenty of physical activity and maintain is too high, fluid may be pulled from the related to lifestyle, genetics or both. a healthy weight. If diet and exercise lenses of the eyes. This may affect the • Race: Although it’s unclear why, children aren’t enough, the child may need oral ability to focus clearly. of certain races – especially blacks, medication or insulin treatment to manage • Slow-healing sores or frequent Hispanics, Native Americans and Asians — his or her blood sugar. infections: Type 2 diabetes affects the are more likely to develop type 2 diabetes. 15 RainbowVisions www.rainbowrehab.com FA L L 2007 About the Author... When to Seek Medical Advice To diagnose type 2 diabetes before it does serious damage, Vicky Scott, Nurse Practitioner Education: Vicky Scott has a Master of Science Degree diabetes screening is recommended in Nursing from the University of Michigan in Ann Arbor, for all children and adolescents Michigan. She is a Certified Nurse Practitioner and Certified at high risk, even if they have no Neuroscience Registered Nurse. signs or symptoms of the condition. Experience/Specialty: Ms. Scott has many years of Consult your health care provider if you are concerned about diabetes or if you notice any of the signs or symptoms including increased thirst and frequent urination, extreme hunger, weight loss, blurred vision, fatigue, slow-healing sores or varied clinical experiences, including her role as a Nurse Practitioner with Neurosurgical practices in Ann Arbor, Michigan and Lexington, Kentucky. She has experience as a Clinical Nurse Specialist in neuroscience at Genesys Regional Medical Center working closely with the trauma team and neurosurgeons treating acute traumatic brain injury. Vicky also has four years experience providing primary care in a rural Michigan Family Practice. frequent infections. Complications Type 2 diabetes can be easy night, a child might wake with sweat- to break down fat, producing toxic acids to ignore, especially in the early stages soaked pajamas or a headache. Thanks known as ketones. Watch for loss of when the child is feeling fine – but the to a natural rebound effect, nighttime appetite, nausea, vomiting, fever, stomach condition must be taken seriously. It can hypoglycemia might cause an unusually pain and a sweet, fruity smell on the child’s affect nearly every major organ in the body, high blood sugar reading first thing in the including the heart, blood vessels, nerves, morning. eyes and kidneys. Keeping blood sugar If signs or symptoms of low blood sugar levels close to normal most of the time develop, give the child fruit juice, glucose can dramatically reduce the risk of these tablets, hard candy, regular (not diet) soda complications. or another source of sugar. If the child loses Continued on page 25 consciousness, an emergency injection of Short-term Complications glucagon may be needed. (Glucagon is Short-term complications of type 2 a hormone that stimulates the release of diabetes require immediate care. Left sugar into the blood.) untreated, these conditions can cause • High blood sugar (hyperglycemia): seizures and loss of consciousness (coma). Likewise, blood sugars can rise for many • Low blood sugar (hypoglycemia): If reasons including overeating, insufficient the blood sugar level drops below the insulin amounts or illness. Watch for target range, it’s known as low blood frequent urination, increased thirst, dry sugar. Blood sugar level can drop for many mouth, blurred vision, fatigue and nausea. reasons including skipping a meal, getting If you suspect hyperglycemia, check the more physical activity than normal or child’s blood sugar. You might need to injecting too much insulin. Watch for early adjust the child’s meal plan or medications. signs and symptoms of low blood sugar If the child’s blood sugar is dangerously such as sweating, shakiness, weakness, high, call the child’s health care provider hunger, dizziness and nausea. Later signs right away or seek emergency care. and symptoms include slurred speech, • Increased ketones in your child’s urine drowsiness and confusion. (diabetic ketoacidosis): If the cells are If hypoglycemia develops during the starved for energy, the body may begin RainbowVisions 16 TBI Community Education Series Presentation on: Improving Behaviors November 2007 Speakers: Colin King, PhD, LLP Scott Gray, MS, LLP Robert Wancha, MA, LLP, CBIS Joseph J. Welch, MS, LLP Jennifer D’Angela, MS, LLP, CBIS Mary Newton, LMSW, CBIS Are you coping with a loved one or patient with antisocial or destructive behaviors? In this presentation, Improving Behaviors: Strategies and techniques for improving difficult behaviors in individuals with TBI, a panel of mental health professionals will speak on principles of behavioral management as well as strategies and techniques for developing and monitoring effective behavior modification plans. Following a short presentation, the panel will open the floor for an interactive question and answer period. This meeting will afford you answers and education on: Improving Behaviors Presentation: When: Wednesday, November 7, 2007 11:00 a.m. – 1:00 p.m. (Lunch & beverages provided) • Current behavior management approaches • Avoiding negative methods Where: Ypsilanti Public Library • Promoting responsible behavior • Effective teaching and coaching • Averting problems before they start • Special challenges in working with TBI survivors • How to implement an appropriate behavioral intervention • Ideas and resources that can help • Understanding the behavior-change process 5577 Whittaker Road in Ypsilanti (Across the street from Rainbow’s Ypsilanti Treatment Center) Cost: Free-of-charge for registered guests Please register by October 31, 2007 • The role of rules and routines Phone: Fax: E-mail: • Reinforcement techniques • Maintaining and increasing desirable behaviors • Effective plan monitoring 17 RainbowVisions (734) 482-1200 x172 (734) 482-5212 [email protected] www.rainbowrehab.com FA L L 2008 2007 Upcoming Community Education events... Accessible Home Modifications Covering clinical evaluations, the building process and new available accessible home products. Coming 2008 About Rainbow’s Community Education Series... Do you find that it’s more difficult to relate to your loved one following their brain injury? Do they have difficulty coping? Perhaps they act out or are struggling with depression. Rainbow Rehabilitation Centers, Inc. offers quarterly community education seminars that cover topics related to brain injury rehabilitation. A leader in the field, Rainbow has treated individuals with mild, moderate and severe brain injuries as well as dual-diagnosis of brain and spinal cord injury for 24 years. Our comprehensive rehabilitation services are delivered through a vast network of treatment environments including Therapy Treatment Centers, Residential Community Homes and Apartments, a NeuroRehab Campus and a Vocational Center. 1.800.968.6644 www.rainbowrehab.com For up-to-date information on our quarterly Community Education presentations, log on to www.rainbowrehab.com RainbowVisions 18 An Interview with Vinnie Malhotra Continued from page 12 stopped it in its tracks. That’s when Bob collapsed. Thank God Magnus and I weren’t injured because we were able to provide some assistance. We were stuck in the tank for a few minutes after the initial blast. There was screaming, yelling and gunfire – I remember trying to get Bob to open his eyes and wake up. There was a gaping hole in Bob’s neck, and I put my hand over it to stop the bleeding. The gunfire was all around us because our convoy was hit with an ambush after the blast. Our friends were bleeding to death – on the verge of dying and we couldn’t get out. Our troops [the U.S. Military] embedded in the convoy created a parameter around the tank and fought off the ambush. At that point, the back hatch of the tank opened and Bob was put on a stretcher. I was screaming to Bob, “You’re going to be OK. You’re going to be OK.” And he asked, “Am I alive?” Eventually, they got Bob and Doug into the MedEVAC helicopter. Altogether it was a relatively quick process, but it felt like an eternity. Bob was in a coma for over a month. I spent a lot of time with Lee and with Vivian, Doug Vogt’s wife. Doug was never in a coma, and I was there through a lot of his recovery. Doug Vogt incurred a brain injury but not as severe as Bob, who was in a coma for five weeks and was diagnosed with a severe TBI. Could you tell us what it was like watching him wake up from his coma, go through rehabilitation and eventually come back to work? For me it was a very emotional and trying experience. I remember the day we got the phone call that Bob had woken up from the coma. That was an incredible day. I remember seeing Bob and realizing that he had a long road to recovery. Watching his development from week to week – his progress was just incredible. There were times where he seemed to have leveled off, but then all of a sudden he would pick back up. Bob’s personality is gracious, compassionate, curious and very sharp, and it was all coming back. Pictured above: A 3-D CT scan of Bob’s skull showing all the rocks that were embedded into his face, neck and around his eyes. Taken at the Bethesda Naval Hospital. 19 RainbowVisions The doctors were concerned about his speech. Did that come back quickly? The moment Bob came out of that coma, he was speaking. I always felt confident about [his speech] because after the bomb blast, he asked me in a very clear voice, “Am I alive?” I think Bob has gotten back to television journalism because he is one of the most driven individuals I have ever met. He approached his rehab with exceptional drive. He tried to read The New York Times very early on, would engage in conversations about Fidel Castro and Middle East politics, and wanted a world map so he could study it. I was always amazed that he never lost steam. I’m sure he went through some very dark periods and dealt with depression, but every time I saw Bob he was very positive and driven. Bob himself will tell you that nobody gets back 100 percent after a severe TBI but his recovery has been more than I could have ever hoped for. He’s a great inspiration for anybody who has survived a brain injury. Bob worked on the documentary “Bob Woodruff: To Iraq and Back” (February 2007) and has worked on some additional stories – following some of the soldiers that you see in the February documentary. Is Bob dedicating a great deal of his time to reporting on the war veterans? Very much so. U.S. veterans of the war in Iraq are a big part of who Bob is now. Long after this war is over, we are going to still have thousands of survivors with massive brain trauma, lost limbs and other injuries. IEDs are vicious, and even though we have much more sophisticated protective armor, it does not protect your limbs and head from bombs. The post-traumatic stress disorder and the psychological ramifications of this war are tremendous. Soldiers are coming back shell-shocked – witnesses to exceptionally violent acts. We have to consider these are 18, 19 and 20 year olds. Regardless of what the debate in the country is about, whether we should be in this war or not, the one thing that there is no debate about is the soldiers and what they are doing out there. It’s just unbelievable. www.rainbowrehab.com As a producer, do you still work with Bob Woodruff? I do work with Bob, but not directly. I work closely with him in terms of helping shape and develop stories for different shows. Bob is an excellent journalist. He’s been through an incredible traumatic brain injury, yet he can still carve out a script. He still has vision of how he wants to approach a story, and he can still ask the tough questions. He’s a walking miracle. Nobody should ever be fooled if they are having a conversation with Bob Woodruff. He may slip on a word here or there, but he is still very sharp and knows exactly what’s going on. Has this incident changed you in any way? It has changed me a great deal. I really don’t want to be that close to the action anymore, but I still have an incredibly large respect for that style of coverage. If someone’s not doing it [reporting in the war zones], then we’re not going to get it. A lot of people say that news media shows FA L L are too violent, but it is important to show because it is a daily occurrence. There are soldiers coming back wounded with brain injuries, with missing limbs, etc. Not covering this news is disrespectful. When you hit the ground in Iraq, you feel danger, and you feel it very closely. You can – dare I say – smell violence in the air. It is a very angry place, and you have to watch your back at all times. If this is not reflected in news coverage, then I think it becomes rather disingenuous. You spent time in Afghanistan, a very violent country. How does the atmosphere there compare to Iraq? There was a totally different feel to Iraq compared to Afghanistan. In Afghanistan there was not the ever-present feeling of danger, and we were able to travel a bit more freely. There were pockets that were very violent, but as a whole, the country was rebuilding itself and trying to get out of the fog of war. In Iraq you can’t escape the violence. In the beginning we traveled a 2007 little more freely but the situation worsened over time. Now the violence is everywhere. A very close friend of mine, James Brolan, who worked for CBS News was with Kimberly Dozier (CBS News correspondent) in Baghdad on Memorial Day 2006 when a car bomb went off right next to them. He was killed instantly, and they had not even left the city. When Mr. Malhotra was interviewed in June, he was a senior producer for ABC’s “Nightline” managing production staff and editorial content for the show. Shortly after that interview, he became executive producer of news content for ABC News weekend programming, overseeing editorial content and production of ABC’s two weekend evening news broadcasts, “World News Saturday” and “World News Sunday” including material for ABC News.com and “ABC News Now.” He also is a senior producer of “World News With Charles Gibson.” Mr. Malhotra has been with ABC News since 1997 and has received four Emmys for his coverage of Iraq. Below: ABC “Nightline” anchor chair at the studio in New York City RainbowVisions 20 From Rainbow’s Residential Program RAINBOW CLIENT G Gabe Mussehl By Kirstin Olmstead, staff writer abe Mussehl has always loved books. As a young girl growing up in France, she remembers hiding her books in between the sheets and reading at night. Her father was also an avid reader and instilled in Gabe a love for books.“I think that is where I get it from,” said Gabe, “At Gabe Mussehl (pictured above) volunteers at the Canton Library three days a week. For her dedication and service, she was recently recognized as “Volunteer of the Year” by the library’s staff. night sometimes my mother could not find him. He had made a little room in the her case manager. “It keeps her mind active consistency volunteering three days a basement with a chair and a lamp in there. and stimulates her by providing time for her week earned her special recognition by He had his books, and he would read.” to interact with different people.” the library staff. She was named “Volunteer Prior to joining Rainbow Rehabilitation One of Gabe’s responsibilities at the of the Year!” in April. “It makes me feel as a patient in early 2001, Gabe and library is to remove the radio-frequency good,” said Gabe of her volunteer work, her husband would frequent the Canton identification (RFID) tags from the books “especially when you are doing good Library weekly. It soon became a familiar being discontinued from the library’s for other people. Then they appreciate you. They tell me every time, ‘Gabe, we place, but a tragic automobile accident in the fall of 2000 would prevent Gabe from returning to the library for a long time. With extensive injuries following her accident, Gabe faced several years of therapy and rehabilitation. As her strength returned, she began to search for “It’s a joy having her [Gabe] here. Over the years, she’s become a valuable part of our team. “ – Gale Forster, Canton Library Associate appreciate it. You don’t know what [good work] you are doing.’” “It’s a joy having her here,” said Gale Forster a library associate responsible for coordinating work for the volunteers. “Over the years, she’s become a valuable part of our team.” opportunities to keep her busy. With the assistance of Rainbow’s circulation. She then scans the tags to In addition to volunteering at the library, Residential Program Director Tanya Lee prepare them for use in new books the Gabe also works behind the counter at and Vocational Specialist Laurie Cooke, library will be adding to its collection. Rainbow’s Ypsilanti Treatment Center Gabe began looking for employment. That’s “I like it there, and I like to help. I will Corner Café twice a week. She offers a when she remembered the Canton Library. ask them [the library staff], ‘What would friendly face to those looking for a mid- After approaching Laurie Cooke about the you like me to do today?’ Then they would afternoon pick-me-up candy bar or a can opportunity, Laurie helped coordinate a tell me they have the stuff ready for me. I of soda. Gabe also loves knitting and schedule with the library, and Gabe soon [attach] the little tags that you put in the crocheting. Her beautiful afghans are returned as a volunteer there in the spring books.” available for purchase at the Van Buren of 2004. With 45 service volunteers who donate Senior Center. “Volunteer work has helped “I wanted something to do. It just came 2,500 combined hours of their time each her feel better about herself because she is to me. I could go to Canton [library].” year, it would be easy to be just one face helping people,” said Tanya Lee, “Gabe is “She initiated it,” said Kathleen Sobczak, among many. Gabe’s dedication and more confident, and it’s helped reintegrate her into the community.” 21 RainbowVisions www.rainbowrehab.com FA L L Rainbow Client Activities Summer 2007 Throughout the year, Rainbow offers both adult and pediatric clients the opportunity to engage in a variety of communitybased activities. Facilitated by recreational therapists, these organized events provide clients with the chance to participate in favorite pastimes and gain exposure to new activities. “Our basic goal is to offer our clients community reintegration and quality of life opportunities,” said Nancy Miller, recreational therapist at Rainbow’s Ypsilanti Treatment Center. This past summer, she planned a variety of outings for adults in Rainbow’s treatment program ranging from Detroit Tigers games to trout fishing. “Going trout fishing is usually a big hit,” said Miller. “Everybody catches a fish, no matter what level. We see so many smiles when that occurs.” The program offers several monthly events for its participants, and Miller takes great pains to vary the outings so that they remain interesting for Rainbow’s adult clients. Adult Outings – Summer 2007 Ethnic Restaurant Dining Detroit Tigers Game Local Entertainers Trout Fishing Detroit Zoo Henry Ford Museum Natural History Museum, U of M Musical Performing Groups African-American Museum 2007 Summer Fun! Outings 2007 Kensington Metropark Crossroads Village & Huckleberry Railroad Water Parks Rock Climbing & Ropes Course Horseback Riding Belle Isle Nature Park Camping Ford Community Performing Arts Center Detroit Tigers Game • FALL 2006 Above: Cooper Loose sits astride a horse at the riding stable. He and fellow “Summer Fun!” participants eagerly awaited a trail ride led by the stable’s staff. Pediatric program participants also look forward to summer activities planned for the “Summer Fun!” program. Created by pediatric rehabilitation specialists, “Summer Fun!” offers children and teens with brain injuries a structured Monday to Friday schedule when school is not in session. Valerie Tuomi is the recreational therapist for the pediatric group. She recently coordinated a horseback riding activity at the Brighton Recreation Area Riding Stable for children enrolled in the program. Staff at the stables hand-led the horses during a 45-minute trail ride, and all of the riders were required to wear a helmet, reinforcing the importance of safety. “We’re working on community independence and definitely safety skills, especially for our little ones – how to deal with strangers and awareness of their surroundings,” said Tuomi of the outings. “It’s also just an opportunity for them to have fun with their group and work on social skills while they’re hanging out.” A resident in Rainbow’s apartment program, Mark Fornetti is an avid outdoorsman. He loves to hunt and each fall joins family members at the hunting camp his father built, located north of Iron Mountain in Michigan’s Upper Peninsula. He loves the sport and the peace and quiet of the woods. His sister, Arlene, notes that Mark also enjoys camp because he plays a pretty mean card game, frequently defeating his brothers. Although he may have a knack for card playing, his true passion is hunting. After many days of sitting quietly in his deer post surrounded by pine trees from sunrise until sunset, Mark finally shot the “big one” – a huge six-point buck – just three days before deer season ended! Afterward, he dragged the buck more than 300 yards back to camp. A quiet man, who rarely proclaims his own accolades, Mark beamed when his sister said she is having the deer head mounted. He hopes to get another deer when he returns to the Upper Peninsula this coming fall. Below: Mark Fornetti with his six-point buck RainbowVisions 22 Returning to Work After a TBI Continued from page 4 themselves. Intact memories and overlearned information (for example, riding a bike or performing a sequence of job tasks) frequently represent areas of strength. These preserved skills can be drawn upon when helping redevelop vocational goals. Sometimes an individual may appear to have a memory impairment when, in fact, they have difficulty paying attention. Inattentiveness can be remediated or, at least improved by cognitive rehabilitation (Sohlberg and Mateer, 1989). Abstract Thinking and Conceptualization An important concern for return to work is whether the individual with brain injury is able to engage in abstract thought. They may find it difficult to shift to other aspects of a problem or to readily search for alternatives. They may lack the capacity for imaginative thought and remain poor problem solvers. Difficulty with abstract reasoning limits the types of productive activity an individual can pursue autonomously and impacts the range, complexity and variety of tasks they can successfully attempt. Conceptualization, which is dependent on the capacity to think abstractly, is another area in which the individual may exhibit cognitive deficits. The ability to effectively conceptualize lies within the realm of higher-level cognition. One must possess a store of learned material that is reliably and readily drawn upon in order to “imagine” or form a mental picture, organize these mental events and be able to translate this cognitive activity into an observable behavior/skill. Problems in the ability to conceptualize can significantly impact employment pursuits (Brain Injury Handbook, 2006). Executive Functioning Deficits in executive functioning are the result of frontal lobe damage. Intact executive functions allow an individual to engage in autonomous, independent, well 23 RainbowVisions planned, effectively organized, sufficiently monitored, self-regulated, purposeful or goal-directed tasks or behaviors. When these capabilities are diminished as the result of brain injury, individuals have difficulty sustaining employment, maintaining satisfactory social relationships and, at times, maintaining adequate selfcare, regardless of how well other cognitive capacities are retained. Frontal Lobe When executive skills are impaired, individuals have difficulty functioning productively. These individuals are viewed as poor self-managers. Those who appear capable are probably the most difficult to treat or evaluate vocationally. They cannot accurately monitor their abilities and need frequent feedback. Without feedback, they do not understand how their weaknesses impact their ability to work. While capable of engaging in complex activities, those impaired in executive functioning may lack the capacity to develop plans or initiate purposeful activity. In extreme cases, these individuals may appear apathetic and unable to initiate except in response to external stimuli. The ability to become engaged dynamically in interactive and intentional behavior is basic to executive skills. As mentioned earlier, when this capacity falters, persons with brain injury can erroneously be labeled lazy or unmotivated (Brain Injury Handbook, 2006). Psychosocial Issues Work, both volunteer and paid employment, is deeply valued in our society. Because of this, more than just an injured worker’s physical and cognitive abilities should be considered when trying to help him or her return to work. Work helps to establish personal identity, self-worth and standing in the community, family and social groups. When a person is engaged in meaningful, gratifying work, it contributes to his overall sense of wellbeing and life balance. When a person’s ability to work is affected by a brain injury, psychosocial issues must be considered. They can be equally if not more debilitating than the physical and cognitive effects. When unable to return to their former work role, individuals may experience many or all of the following psychosocial effects: • Grief and feelings of loss related to personal identity in the role of worker and wage earner • Grief and loss of standing or authority in www.rainbowrehab.com FA L L 2007 About the Authors... the family • Actual loss of wages/income • Lack of appropriate leisure skills or interests, especially if the person was considered a “workaholic” previous to his or her disability • Excessive idle time that could lead to unhealthy or inappropriate use of time (e.g. recreational drug use or abuse) • Loss of social contact or social network • Isolation or withdrawal that can lead to depression, anxiety and other forms of emotional distress. As mentioned previously, many types of cognitive and physical R disabilities can be overcome with adaptations and compensations. However, psychosocial issues are often more difficult to identify and accommodate. When accommodations and adaptations are used, they are often rejected by the worker and/or the employer. When a person experiences an injury resulting in a permanent disability, several psychosocial factors may influence their willingness or reluctance to return to work: • Fear of the employer and/or employee that the worker no longer possesses the skills or abilities to perform the job • Adaptations that are required are seen as bothersome by the employer, or the employee may feel embarrassed and uncomfortable asking for the adaptations • Subtle or non-tangible disabilities such as cognitive deficits, mental illness or substance abuse disorders are difficult to accommodate and may significantly impact a worker’s performance • Obvious or known use of adaptations or supports on the job could be related to feelings of inadequacy and a reluctance to return to work. A psychosocial effect often seen in brain Angie McCalla, Speech Language Pathologist (SLP) Education: Angie McCalla, MS, CCC-SLP, CBIS has a master of science degree in speechlanguage pathology from Bowling Green State University in Ohio and a bachelor of science in communication disorders from Central Michigan University in Mt. Pleasant, Michigan. Experience/Specialty: Angie is the Lead Speech-Language Pathologist with over 11 years of experience at Rainbow and 13 years experience treating persons with a range of neurological impairments. She currently holds specialty certification in Deep Pharyngeal Neuromuscular Stimulation (DPNS) and the Lee Silverman Voice Treatment (LSVT). Angie is also a certified Brain Injury Specialist (CBIS), a member of the American Speech Language Hearing Association (ASHA) and the Michigan Speech Language Hearing Association (MSHA.) Laura Konrad, Occupational Therapist (OTR) Education: Laura Konrad, OTR, NDTC, CBIS has a Bachelor of Science degree in Occupational Therapy from Eastern Michigan University in Ypsilanti, Michigan. Experience/Specialty: Laura is the Lead Occupational Therapist at Rainbow and has over 14 years of experience working with people with brain injuries and neurological disorders at all levels of recovery. She has been with Rainbow for 12 years and holds certifications in Neuro-Dynamic Therapy and Brain Injury Specialty. Laura is a member of the American Occupational Therapy Association (AOTA), the Michigan Occupation Therapy Association (MiOTA) and is a certified Brain Injury Specialist (CBIS). injury that further confounds potential success is that a person may not be able to return to the same level or position they previously held. This can lead to resentment and bitterness because they are taking a position that is “beneath” them or that has “less importance” than their previous job. This presents a challenge to the rehabilitation team, family and the injured worker. They must identify a work experience that suits their current abilities and interests and that will promote satisfaction and pride. Continued on page 27 RainbowVisions 24 Type 2 Diabetes diabetes is a leading cause of blindness. Even if the child eats on a rigid schedule, Continued from page 16 • Foot damage: Nerve damage in the feet the amount of sugar in the blood can or poor blood flow to the feet increases change unpredictably. With help from a the risk of various foot complications. Left diabetes treatment team, you’ll learn how breath. If you suspect ketoacidosis, check untreated, cuts and blisters can become blood sugar levels change in response to: the child’s urine for excess ketones with serious infections. • Food: What and how much the child an over-the-counter ketones test kit. If the • Skin conditions: Diabetes may increase eats will affect the blood sugar level. Blood child has excess ketones in his or her urine, susceptibility to skin problems including sugar is typically highest one to two hours call the child’s health care provider right bacterial infections, fungal infections and after a meal. away or seek emergency care. itching. • Physical activity: Physical activity moves • Osteoporosis: Diabetes may lead to sugar from the blood into the cells. The Long-term Complications lower than normal bone mineral density, more active the child is, the lower the Long-term complications of type 2 increasing the risk of adult osteoporosis. blood sugar level. diabetes develop gradually. The earlier • Medication: Any medications the child the child develops diabetes and the less Treatment takes may affect the blood sugar level, controlled the blood sugar has been, the Treatment for type 2 diabetes is a lifelong sometimes requiring changes in the child’s higher the risk of complications. Eventually, commitment to blood sugar monitoring, diabetes treatment plan. diabetes complications may be disabling or healthy eating, regular exercise and, • Illness: During a cold or other illness, the even life-threatening. sometimes, insulin or other medications. child’s body will produce hormones that • Heart and blood vessel disease: Diabetes The decision about which treatment is best raise the blood sugar level. dramatically increases the risk of various depends on the child, his or her blood In addition to frequent blood sugar cardiovascular problems, including sugar level and the presence of any other monitoring, regular glycated hemoglobin coronary artery disease with chest pain health problems. (A1c) testing may be recommended. This (angina), heart attack, stroke, narrowing of blood test indicates the average blood the arteries (atherosclerosis) and high blood Blood Sugar Monitoring sugar level for the past two to three months. pressure. Depending on the treatment plan, It works by measuring the percentage of • Nerve damage (neuropathy): Excess blood sugar may need to be checked and blood sugar attached to hemoglobin, the sugar can injure the walls of the tiny recorded several times a day. This requires oxygen-carrying protein in red blood cells. blood vessels (capillaries) that nourish frequent finger sticks and is the only way The higher the blood sugar levels, the more the nerves, especially in the legs. This can to ensure the blood sugar level remains hemoglobin will have sugar attached. The cause tingling, numbness, burning or pain within the target range. This may change as target A1c goal may vary depending on the that usually begins at the tips of the toes the child grows and changes. child’s age and various other factors. or fingers and over a period of months Compared with repeated daily blood sugar or years gradually spreads upward. Left tests, A1c testing better indicates how well untreated, the child could lose all sense of the diabetes treatment plan is working. An feeling in the affected limbs. elevated A1c level may signal the need for • Kidney damage (nephropathy): The a change in the treatment plan. kidneys contain millions of tiny blood vessel clusters that filter waste from the Healthy Eating blood. Diabetes can damage this delicate There is no diabetes diet. A child with filtering system. The earlier diabetes type 2 diabetes won’t be restricted to a develops, the greater the concern. Severe lifetime of boring, bland foods. Instead, damage can lead to kidney failure or he will need plenty of fruits, vegetables irreversible end-stage kidney disease, and whole grains – foods that are high in requiring dialysis or a kidney transplant. nutrition and low in fat and calories – and • Eye damage: Diabetes can damage fewer animal products and sweets. In fact, the blood vessels of the retina (diabetic it’s the best eating plan for the entire family. retinopathy), can also lead to cataracts and Sugary foods are OK once in a while, as a greater risk of glaucoma. By adulthood, long as they’re included in the meal plan. 25 RainbowVisions www.rainbowrehab.com FA L L 2007 Insulin Pump Understanding what and how much include: to feed a child with diabetes can be a • Eating healthy foods: Offer foods low in challenge. A registered dietitian can help fat and calories. Focus on fruits, vegetables you create a meal plan that fits the child’s and whole grains. Strive for variety to health goals, food preferences and lifestyle. prevent boredom. Remember the importance of consistency • Getting more physical activity: to keep the blood sugar levels on an even Encourage the child to get active. Sign up keel and encourage the same amount of for a sports team or dance lessons, or look food (same proportion of carbohydrates, for active things to do as a family. proteins and fats) at the same time every • Losing excess pounds: Make permanent day. It is a device about the size of a cell changes in eating and exercise habits.Better phone worn on the outside of the body. A yet, make it a family affair. Physical Activity tube connects the reservoir of insulin to The same lifestyle choices that can help Everyone needs regular aerobic exercise, a catheter inserted under the skin of the prevent type 2 diabetes in children can do and children with type 2 diabetes are no abdomen. The pump is programmed to the same for adults. exception. Encourage regular physical automatically dispense specific amounts of activity, and make it part of the daily insulin and can be adjusted to deliver more routine. Remember that physical activity or less depending on meals, activity and lowers blood sugar. If the child requires blood sugar level. insulin treatment, check blood sugar level Many types of insulin are available, before any activity. A snack might be including rapid-acting insulin, long-acting needed before exercising to help prevent insulin and intermediate options. Examples low blood sugar. include regular insulin (Humulin R and Novolin R), NPH insulin (Humulin N, Insulin and Other Medications Novolin N), insulin lispro (Humalog), Some children who have type 2 diabetes insulin aspart (NovoLog) and insulin can control their blood sugar with diet and glargine (Lantus). Depending on need, a exercise alone, but many also need oral mixture of insulin types may be prescribed medication or insulin treatment. to use throughout the day and night. Metformin is the only oral medication Inhaled insulin (Exubera) hasn’t been approved for children and adolescents (age approved for children. 10+) who have type 2 diabetes. Metformin reduces the amount of sugar the liver Conclusion releases into the bloodstream between Healthy living choices are necessary meals. Although the drug is effective, to maintain normal weight and decrease some brands are only for adult use. Side the risk of developing type 2 diabetes in effects may include nausea, upset stomach, children and adolescents. Similar strategies diarrhea and, in rare occasions, a harmful can be used to control weight and blood buildup of lactic acid (lactic acidosis). sugar. Healthy lifestyle choices that can Metformin isn’t safe for anyone who has help prevent type 2 diabetes in children liver, kidney or heart failure. Because stomach enzymes interfere with insulin taken by mouth, oral insulin isn’t an option for lowering blood sugar. Often, insulin is injected using a fine needle and syringe or an insulin pen (a device that resembles an ink pen with an insulin-filled cartridge.) An insulin pump also may be an option. Insulin Pen SOURCES: 1.CDC, National Center for Health Statistics. National Health and Nutrition Examination Survey. Ogden et al. JAMA. 2002; 288L 17281732. 2.Fact Sheet: Obesity in Youth – 2002. American Obesity Association. 3.Ogden CL, Flegal KM, Carroll MD, Johnson CL. Prevalence and trends in overweight among US children and adolescents, 1999-2000. Journal of the American Medical Association 2002; 288: 1728-32. 4.Source: CDC, Youth Risk Behavior Surveillance- United States, 2005. Morbidity & Mortality Weekly Report 2006; 55: 1-108. 5.Ogden CL, Carroll MD, Curtin LR, McDowell MA, Tabak CJ, Flegal KM. Prevalence of overweight and obesity in the United States, 1999-2004. Journal of the American Medical Association 2006; 195: 1549-1555. 6.UCSF Children’s Hospital, Childhood Obesity (2002) Retrieved 3/15/07 from http://www. ucsfhealth.org/childrens/medical_services/ hdisorder/obesity/ 7.Source: Evaluation and Treatment of Childhood Obesity (American Family Physician February 15, 1999, http://www.aafp.org/ afp/990215ap/861.html) 8.Mayo Clinic Staff (March 31, 2006) Childhood Obesity. Mayo Foundation for Medical Education and Research (MFMER). Retrieved 3/15/07 from MayoClinic.com, http://wwwmayoclinic.com/ childhood-obesity/DS00698 9.Fact Sheet: Childhood Obesity – 2002. American Obesity Association. http://www. obesity.org/subs/childhood/ 10. Source: Centers for Disease Control and Prevention, retrieved 3/15/07 from http://www. cdc.gov/ website last updated 5/4/07. RainbowVisions 26 Returning to Work After a TBI Continued from page 24 The Roles and the Challenges of the Rehabilitation Team Rehabilitation professionals work to provide remediation in core work skills and help develop greater self- acceptance. This is done by focusing on remaining or new abilities and strengths. When skills and strengths are identified and optimized, appropriate placement can be determined, ensuring work success and satisfaction. While our society is more accepting of people with disabilities than it has been historically, many roadblocks to acceptance still exist. Rehabilitation professionals can educate employers and the public of the value of workers with differing abilities. Our society and communities are enriched by diversity, especially when a worker is matched with the right work environment. When assisting a person with a brain injury in ‘return to work’ skills, some objectives of the rehabilitation team include: • Assisting the person to resume and value the role of worker • Facilitating self-worth and self-image through graded experiences providing a balance of challenge and success • Improving work skills related to the actual job: Physical, cognitive, technical, social (interaction with peers, ability to take direction from a supervisor) and executive skills (self-monitoring, evaluation of work completed, problem solving, initiation and motivation) • Acting as a liaison between the workplace, insurance companies, government agencies and the worker • Educating employers and the public of the value of workers with differing abilities. Conclusion Returning to work is an important aspect of brain injury recovery and rehabilitation. Gainful employment is highly respected in our culture. The ability to achieve successful employment not only leads to financial stability and independence, it also provides a sense of purpose, well-being and social status. For individuals lacking necessary work skills, assistive therapies and interventions by trained professionals can help survivors reach employment goals. Therapists can help individuals with brain injuries match their skills with meaningful jobs, help them acquire new skills or regain abilities. Assistance is often necessary in order to return to work and attain employment goals. See next page for reference list. A Specialty Transportation Company We offer personalized, attentive and expert transportation services for individuals with special needs throughout Southeastern Michigan. Call: 1.800.306.6406 ier! s a e t o g t s ju d Getting aroun 27 RainbowVisions www.rainbowrehab.com FA L L 2007 References Boake, C., Millis, S. R., High, W.M., Delmonico, R.L., Kreutzer, J.S., Rosenthal, M., Sherer, M., & Ivanhoe, C.B. (2001). Using early neuropsychologic testing to predict long-term productivity outcome from traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 82, 761-768. Cifu, D.X., Keyser-Marcus, L., Lopez, E., Wehman, P., Kreutzer, J. S., Englander, J., & High, W. (1997) Acute predictors of successful return to work one year after traumatic brain injury: A multicenter analysis. Archives of Physical Medicine and Rehabilitation, 78, 125-131. Gollaher, K., High, W., Sherer, M., Bergloff, P., Boake, C., Young, M. E., & Ivanhoe, C. (1998). Prediction of employment outcome one to three years following traumatic brain injury. Brain Injury, 12, 255-263. Gupta, Jyothi, (2006), Workplace Accomodations: Challenges and Opportunities, OT Practice, 11, 9-14 Jacobs, H.E. (1997) The Clubhouse: Addressing WorkRelated Behavioral Challenges Through a Supportive Social Community. The Journal of Head Trauma Rehabilitation; vol. 4 number 5: 42-56. Kreutzer, J. S., Marwitz, J. H., Walker, W., Sander, A., Sherer, M., Bogner, J., Fraser, R., & Bushnik, T. (2003). Moderating factors in return to work and job stability after traumatic brain injury. Journal of Head Trauma Rehabilitation, 18, 128-138. Miller, Denise, (2004), Psychosocial Issues and the Return-to-Work Process, OT Practice, 9, 16-20 Sherer, M., Bergloff, P., High, Jr., W., & Nick, T. G. (1999). Contribution of functional ratings to prediction of long-term employment outcome after traumatic brain injury. Brain Injury, 13, 973-981. Sherer, M., Hart, T., Nick, T.G., Whyte, J., Thompson, R.N., & Yablon,S. A. (2003) Early impaired selfawareness after traumatic brain injury. Archives of Physical Medicine Rehabilitation, 84, 168-192. Sherer, M., Sander, A.M., Nick, T.G., High, W.M., Jr., Malec, J.F., & Rosenthal, M. (2002). Early cognitive status and productivity outcome after traumatic brain injury: Findings from the TBI Model Systems. Archives of Physical Medicine and Rehabilitation, 82, 183-192. Sohlberg, M.M. & Mateer, C. A. (1989) Introduction to Cognitive Rehabilitation: Theory and Practice. The Guilford Press The Brain Injury Handbook: An Introductory Guide to Understanding Brain Injury for Vocational Rehabilitation Professionals (2006) Brain Injury Association of New Jersey, Inc. Adapted from The Brain Injury Handbook: An Introductory Guide to Understanding Brain Injury for Vocational Rehabilitation Professionals (1991) Brain Injury Association of Florida. Jacobs, H.E. (1997) The Clubhouse: Addressing WorkRelated Behavioral Challenges Through a Supportive Social Community. The Journal of Head Trauma Rehabilitation; vol. 4 number 5: 42-56. Vandiver, V.L., Johnson, J., &Christofero-Snider, C. (2003) Supporting Employment for Adults with Aquired Brain Injury: A conceptual model. Journal of Head Trauma Rehabilitation, 4, 445-456. Ansell, B.J., Keenan, J.E., Dela Roche, O. (1989) Western Neuro Sensory Stimulation Profile: A tool for assessing slow to recover head-injury patients. Western Neuro Care Center, Tustin, California. Garden City Apartments Family & Pet Friendly Garden City Apartments offer a unique and supportive family environment where residents with traumatic brain injury are empowered to work toward therapy and recovery goals. At Rainbow’s Garden City Apartments, adults can reside as a single, as part of a family, or as parents caring for their children – Rainbow’s Staff provides the necessary support. To download a brochure log on to: For a tour or more information call... www.rainbowrehab.com 1.800.968.6644 Select Education & Publications Rainbow Literature RainbowVisions 28 2007 Conference & Event Schedule September – November September October September 5 - 8, 2007 October 3 - 6, 2007 National Association of State Head Injury Administrators Gateway to What Works in the World of TBI at the Adams Mark ARN 33rd Annual Educational Conference Reshaping Our Future at the Hilton Washington in Washington, DC Hotel in St. Louis, MO For info log on to: www.nashia.org For info log on to: www.rehabnurse.org October 4, 2007 September 11, 2007 CMSA Detroit Chapter Dinner Conference at Burton Manor, Livonia, MI For info log on to: www.cmsadetroit.org October 6 - 7, 2007 September 11 - 12, 2007 MPRO Quality Expo for Healthcare Providers at the Radisson Hotel in Kalamazoo, MI For info log on to: www.mpro.org International Symposium on Life Care Planning at the Hilton Bayfront in St. Petersburg, FL For info log on to: http://conferences.dce.ufl.edu/lcp/ October 7 - 10, 2007 September 18, 2007 CMSA Grand Rapids - Kalamazoo Chapter in Grand Rapids, MI Call: (616) 534-1650 September 23 - 25, 2007 AANLCP Conference at Disney’s Coronado Springs Resort in Orlando, FL For info log on to: www.aanlcp.org September 26 - 28, 2007 4th Annual Texas Workers’ Comp Forum Embassy Suites Dallas - Frisco Hotel & Conference Center, Dallas, TX For info log on to: www.txwcforum.com American Neurological Assoc. 132nd Annual Meeting at the Marriott Wardman Park Hotel in Washington, DC For info log on to: www.aneuroa.org October 13, 2007 2nd Annual Brain Injury Conference at the William Beaumont Hospital in Royal Oak, MI For info e-mail: [email protected] October 19 - 20, 2007 Michigan Occupational Therapy Association at the Macomb Community College, Warren, MI For info log on to: www.mi-ota.com September 27 - 28, 2007 27th Annual BIA of Michigan Conference at the Lansing Center in Lansing, MI For info log on to: www.biami.org October 22 - 23, 2007 Michigan CMH Fall Conference at the Grand Traverse Resort & Spa in Traverse City, MI For info log on to: www.macmhb.org September 27 - 29, 2007 NABIS 5th Annual Conference on Brain Injury & 20th Annual Conference on Legal Issues in Brain Injury at the Westin Riverwalk Hotel in San Antonio, TX For info log on to: www.nabis.org ACMA Great Lakes Chapter Case Management Conference at St. John Macomb Hospital in Warren, MI For info log on to: www.acmaweb.org October 24 - 26, 2007 MRC/MARO Michigan Rehab Conference at the DeVos Place in Grand Rapids, MI Call: (517) 484-5588 October 29 - 30, 2007 Hospital Case Management Administration at the Hyatt Regency Boston in Boston, MA For info log on to: www.contemporaryforums.com For up-to-date additions, changes and 2008 conference dates log on to: www.rainbowrehab.com > Select Education & Publications > Select Conferences & Events Visit our website for past Visions’ article downloads! 29 RainbowVisions www.rainbowrehab.com FA L L November 2007 MBIPC Michigan Brain Injury Providers Council November 1- 3, 2007 IARP 2007 Forensic Conference at the Bally’s Las Vegas in Las Vegas, NV For info log on to: www.rehabpro.org Learn over Lunch Scheduled meeting times are 12:00 - 2:00 p.m. (Registration at 11:30 a.m.) November 2 - 4, 2007 Pediatric Brain & Spinal Cord Injury Conference at the Sonesta Hotel in Coconut Grove, FL For info log on to: www.pedibrain.org November 3 - 7, 2007 Society for Neuroscience, 37th Annual Meeting at the San Diego Convention Center in San Diego, CA For info log on to: www.sfn.org November 5 - 7, 2007 BIAA Brain Injury Practice College at the Westin Casuarina Resort & Spa in Las Vegas, NV For info log on to: www.biausa.org November 6 - 8, 2007 Workers’ Compensation and Disability Conference & Expo at the McCormick Place in Chicago, IL For info log on to: www.wcconference.com November 12 - 14, 2007 Case Management Along the Continuum at the Las Vegas Hilton in Las Vegas, NV For info log on to: www.contemporaryforums.com Cost: Member $20 / Non-member $50 For information e-mail: [email protected] For Fall dates, locations and topics, please log on to www.rainbowrehab.com Select Education & Publications / Conferences & Events Select the “Learn Over Lunch Series 2007” link October 9, 2007 Location: Grand Rapids or Lansing / Topic: TBA November 13, 2007 Location: Livonia / Topic: TBA December 11, 2007 Location: Grand Rapids or Lansing / Topic: TBA For up-to-date topic information, locations and the 2008 calendar log on to: www.rainbowrehab.com > Select Education & Publications > Then select Conferences & Events November 13, 2007 CMSA Detroit Chapter Dinner Conference at Burton Manor in Livonia, MI For info log on to: www.cmsadetroit.org RINC Meetings Rehabilitation & Insurance Nursing Council November 13, 2007 CMSA Grand Rapids - Kalamazoo Chapter in Kalamazoo, MI Call: (616) 534-1650 November 14 - 15, 2007 MSU Case Management Conference at the Kellogg Center in East Lansing, MI For info log on to: www.nursing.msu.edu Members Only Registration begins at 11:30 a.m. Followed by lunch / presentation at 12:45 p.m. For more information contact Adrienne Shepperd: (248) 656-6681 September 21, 2007 Topic: IEPC & Special Education of the TBI Patient November 14 - 17, 2007 The 27th Annual National Academy of Neuropsychology Conference at the Westin Kierland Resort & Spa in Scottsdale, AZ For info log on to: www.nanonline.org Location: Pasquale’s Restaurant, Royal Oak Speaker: Jerome Burman October 19, 2007 Topic: Dizziness & Headache caused by TBI – A New Treatment Using Prismatic Corrective Spectacle Lenses TBI Community Education Series Location: Radisson Kingsley Inn, Bloomfield Hills Speaker: Debby Feinberg, O.D. November 16, 2007 Topic: Differential Diagnosis of Shoulder vs Cervical Spine Injury Location: No. VI Chophouse in Novi, MI Speaker: Louis Radden, D.O., Orthopedic Surgeon See page 17 for details RainbowVisions 30 Special Needs Trust Continued from page 7 Pooled Trusts Set up by a Nonprofit commingled but are pooled for investment Organization purposes to obtain a better return. While an individualized, self-funded Sometimes parents, grandparents, option is fine for some, others prefer a or individuals with disabilities (if no The first, sometimes called a Medicaid second self-funded option – the pooled guardianship is in place) can initiate Payback Trust or a Section d(4)(A) Trust, trust. This option may be preferable if: participation in a pooled trust by signing a is more individualized and requires that • the family cannot identify a suitable joining agreement. If a guardian is in place any funds remaining at the death of the private trustee and no other person is able to sign the beneficiary must be paid back to Medicaid. • the bank trust department fees are cost- joining agreement, a petition must be filed This option is perfectly fine with many prohibitive in probate court to establish an account in families–they believe it is only fair that • the family has a desire to have the the pooled trust. any remainder funds after the death of remainder funds, after their relative’s death, the primary beneficiary should reimburse stay in their community to assist other An Example of a Pooled Trust Medicaid for what it paid during the persons with disabilities rather than go The Brain Injury Association of Michigan person’s lifetime. back to Medicaid has recently entered into an agreement To set up this type of individualized, A pooled trust is authorized by the with one of the largest pooled trust projects self-funded trust, the family must identify same federal statute as the individualized in Michigan – the Hope Network Pooled someone who can serve as the trustee Medicaid Payback Trust and is recognized Trust. Their goal is to make this option more and then hire a private attorney with by the Michigan Program Eligibility available to BIAMI constituency. experience in this area of the law. The Manual at item 401. It must be set up by Individuals with brain injuries or other individualized nature of the trust makes a nonprofit agency. Its most interesting disabilities can self-fund an account within it a little more expensive to set up but feature is that remaining funds are held the Hope Network Pooled Trust and use gives the family more individual control by the pooled trust after the person dies, it throughout their lifetime. If any funds over disbursements. They should also be and they are not required to pay back remain after the person passes away, it aware that it obligates the trustee to know to Medicaid. The remaining funds can need not be repaid to Medicaid – a portion what disbursements will not jeopardize be used to help others with disabilities of it can be earmarked for use by BIAMI’s government benefits and make wise who are known to the nonprofit agency. constituency. It’s a win-win situation! investments as a fiduciary. Administratively, individual funds are not What Can a Special Needs Trust Pay For? Either the third-party or a self-funded special needs trust can pay for a wide variety of things for which there is no other source of payment. Examples include: • extra in-home support services • uncovered health care or therapies • amenities, trips, or recreational activities If the beneficiary is receiving SSI, the trustee must be careful not to use the trust funds for items that the SSI is meant to cover, such as food and shelter, so there is not a reduction in SSI benefits. t For more information on special needs trusts, contact Daniel L. Blauw, Attorney at Law: E-mail: [email protected] Phone: (616) 336-5098 Address:1515 Michigan Street NE, Grand Rapids, MI 49503 31 RainbowVisions www.rainbowrehab.com FA L L 2007 NeuroRehab Campus Clinical Programing: The NeuroRehab Campus for adults with brain & spinal cord injuries offers Rainbow’s full Continuum of Care including active therapy, community outings and supported living for individuals with medical needs. Some of the unique features offered through the residential portion of the campus include... • Two 20-bed facilities with private bedrooms and private baths. Each room offers optional cable TV, internet access, telephone access and call light/intercom system access. • Physician visits on-site • Executive chef • Nursing services available on-site 24/7 • Professional treatment team on-site Guardianship of the estate or property is Guardianship Continued from page 8 assigned the following responsibilities: •Marshall and protect assets •Obtain appraisals of property •Protect property and assets from loss •Receive income for the estate •Make appropriate disbursements •Obtain court approval prior to •Consent to / monitor medical selling any asset treatment •Report to the court on estate status •Consent to / monitor non-medical When appointing guardianship, courts rights may be removed: The right to... •Determine residence •Consent to medical treatment •Make end-of-life decisions •Possess a driver’s license •Manage, buy or sell property •Own or possess a firearm or weapon •Contract or file lawsuits •Marry •Vote services (example: education) will take several things into consideration. •Consent to the release of They will likely select a guardian based of the guardianship process. Parents need confidential information on the ability to enhance the disabled to consider who will be the guardian for •Make end-of-life decisions •Act as representative payee •Maximize independence in the least person’s lifestyle. Guardians are expected their child when they are no longer able to to consider the wishes and goals of their make decisions. In some states, there are ward, include them in making decisions not-for-profit organizations that provide restrictive manner (when possible) and advocate on their guardianship services. In many states, •Report to the court about the behalf. It is not the role of the guardian to parents can designate a substitute guardian guardianship status at least annually limit activity or social interactions. When or can name someone in their will. t Long-term planning should also be part a court appoints a guardian, the following RainbowVisions 32 The Last Word will become known as the intellectual force behind effective rehabilitation. (By the way she was the manager at Stoneham on Sherri’s first day.) RAINBOW’S VALUED Staff of Professionals I Written by Buzz Wilson, CEO n prior articles, I have tried to focus on behind-the-scenes vignettes of Rainbow’s leadership. Bill Buccalo and Sherri McDaniel were in lights. Rainbow has a flat hierarchy with lines of communication all over the place. This is confusing to everyone but me, and that’s another story. Out of this confusion emerges an incredible company, recognized by everyone as a haven for leaders in the industry. Among others who will be honored in future articles (lest I forget them) are folks who are simply the best in the business – Rainbow’s management team including Heidi Reyst, Sean Youngren, Chad Fife, Lisha Clevenger, Mariann Young, Vicky Scott, Pawan Galholtra, Colin King, Mark Evans, Bill Buccalo and Sherri McDaniel. While Rainbow’s personnel are not perfect, to suggest that anyone knows this industry better, well – the tooth fairy is alive and well. A visit to Rainbow’s Pediatric Rehabilitation Program at the Oakland Center (ROC) is a must see. This is what rehabilitation is all about – passion and hope. At Rainbow, you have to believe in what you are doing because the stories are so tragic. You can’t give lip service to rehabilitation; you have to feel it, and the folks at the ROC are incredible. Dr. Mariann Young has molded our pediatric/ adolescent program into a haven of caring individuals, which isn’t so easy, although they make it look that way (they work their keisters off). There was the day when the entire ROC team was in tears, leading me to get off my duff and shake up management. It’s been a labor of love with some gentle tugging and shoving mixed in. In past years I was always asked to manage the pediatric team. To what purpose? 33 RainbowVisions How the Pediatric Program Got Started A former colleague and personal friend of mine – Heather Ramsey at Kalamazoo College – helped in the development of our pediatric program. We were having trouble getting the good folks at Farmington Hills City Hall to issue us an occupancy permit for one of our pediatric residential homes. Heather occupied the city offices and refused to leave until the form was signed by the city manager. The pediatric program began that day. Its growth, both in numbers and respect, has grown immensely. For a long time I had posted on the recruiting halls of Kalamazoo College an open invitation for any graduate to come and work at Rainbow. Rebecca, Heather, Valerie (I am forgetting some) and Heidi came to Rainbow. CARF Recertification If you want a picture taken, a nail driven, a therapist aided, a management decision made, and the entire organization ready for the triennial CARF survey, you call Dr. Heidi Reyst. Rainbow is what it is today because of Heidi. To test the math skills of new hires, we give them the task of determining her length of service. She started and stopped so many times, that her path is an exercise in mobility. Oftentimes, you don’t start out to become irreplaceable, but through being dependable as well as smart, you end up that way. The harder tasks are always handed to the people like Heidi. Our growing cutting edge reputation for developing and utilizing data measurement is due to Heidi. I have a prediction: In addition to helping develop the training standards in the industry, she Rainbow’s Softball Team Kalamazoo College was the home of the women’s softball training ground. Heidi is in retirement, but last year’s championship team, under the careful management of Kim Waddell (Rainbow’s Administrative Coordinator), was known as the team where the weak spots were men. I never realized that we hired so many professional women to fill our ranks. As a professional softball player, the man with the worst on-base percentage was Sean Youngren. It was probably zero. If he didn’t hit a home run, he was out. Read between the lines. In any event, I gave Sean the task of handling all things administrative. At one time or another, he supervised house managers, maintenance staff, interfaced with accounting and finance, dealt with licensing our many facilities, helped develop training modules, helped in the development of new facilities, and still had time to eat lunch. Like me, he never met a lunch hour he didn’t like. Though to be honest about it, he doesn’t have much time to indulge in such mundane pastimes. Sean has been assigned the tasks of opening up Macomb County, developing a medical complex, developing a therapy center, developing a behavior complex, and finding time to keep me involved in the day to day – as much as I want. We have never had a bad licensing since Sean has been in charge. It has been fun watching these guys develop into experts. Rainbow is a place where personal growth doesn’t just happen – it evolves (proving that good things happen to good people who work hard.) Until next time, Chad (I count), Lisha (I count clients), Vicky (I count medications), Pawan (I count spines), Colin (I count bruises), Mark (I count the number of times I had to evict Heather). We work hard to do well and do good, and we sure have fun. Next time. t www.rainbowrehab.com FA L L 2007 Employee of the Season - Winter 2007 Rehabilitation Assistants Ann Arbor Apts: Juanita Thomas & Lakesha Shell After School Program: Reggie Day & Robin Baker APFK I: Troy Green APFK II: Chris George Bell Creek: David Prince Belleville: Leslie Gregory & April Fifer Bemis: Janifer Eddins Brookside: Rebecca Staples Carpenter: LaTease Lykes Elwell: Terrance Wilson Paint Creek: Maureen Hartigan Garden City Apts: Yvonne El-Badry Parkview: Terri Schweim Gill: Alicia Shaw Shady Lane: Adrienne Gazdag Glenmuer: Lisa Reese-Williams & Kenyatta Young Southbrook: Shawnte Simmons Highmeadow: Robert Menefee Talladay: Adam Orrison & Tonya Nougaisse Hillside: Cynthia Schneider Textile: Tilia Finklea Home Health: Andrea Willis (LS), Lori Bailey (MG) Whittaker: Michele Murphy Maple: Evelyn Williams Woodside I: Angelina Baker NRC: Vonnette Williams & Kecia Dixson Woodside II: Elmarie Dixon Page: Pat Bauld House Managers Pierre Chatman Betty Williams Karen Gayles Beth Flory Tammy Zentz Professional / Therapy Staff Jonietta Crawford Stacey Clark Mary Mitchell Nicole Rondini Marty Humphrey Valerie Tuomi Joe Welch Administration/ OEI / RehabTransport Susan Gibbons Bob Adams Ben Wood Matt Totton Congratulations to our Outstanding Staff! 2007 Rainbow Scholarship Recipient We are pleased to announce the 2007 Rainbow Rehabilitation Centers Scholarship for High School Seniors Award Winner – Ms. Amanda Ardner. Rainbow awards a scholarship to graduating seniors from area high schools who (1) would be full-time students in an accredited Michigan college or university and (2) have the intent to pursue a health care or health services course of study. One student from each area district may be selected to receive a $1,000 award. Amanda Ardner met with Rainbow Rehabilitation Centers’ staff on June 13, 2007 where she was presented with a scholarship award certificate. She is a graduate of Lincoln High School with an impressive record of leadership and academic achievement. She plans to attend Eastern Michigan University and we wish her all the best in her bright future! Pictured: Bill Buccalo, Amanda Ardner & Lisha Clevenger RainbowVisions 34 Rainbow Rehabilitation Center Locations: Ypsilanti Treatment Center 5570 Whittaker - PO Box 970230 Ypsilanti, MI 48197 734.482.1200 Oakland Treatment Center 32715 Grand River Avenue Farmington, MI 48336 248.427.1310 NeuroRehab Campus 25911 Middlebelt Road Farmington Hills, MI 48336 248.471.9580 For more information call toll free... 1.800.968.6644 E-mail: [email protected] www.rainbowrehab.com P.O. Box 970230 Ypsilanti, Michigan 48197 Presorted Standard U.S. Postage PAID Permit 991 Ypsilanti, MI If you do not wish to receive copies of RainbowVisions, please e-mail: [email protected]