SpinalColumn - Shepherd Center
Transcription
SpinalColumn - Shepherd Center
Educational DVDs SpinalColumn Shepherd launches DVDs for newly injured. See Page 16 ® The Magazine of Shepherd Center: Providing Medical Treatment, Research and Rehabilitation | spinalcolumn.org MS Ride Team Shepherd helps Cox Atlanta bike ride raise $1 million for MS. A Step Forward Shepherd Center enrolls first patient in national spinal cord injury stem cell clinical trial. Return to Work School principal returns after near-fatal shooting. Patient Profile Former brain injury patient credits both Shepherd Center and a nature preserve for his recovery. New Equipment Shepherd Center seeks to add new therapeutic equipment to advance patient care. Winter 2011 The Role of the Caregiver Shepherd Center trains and encourages patients’ loved ones to be good caregivers – the kind with compassionate hearts, strong wills and true selflessness. Winter 2011 Photo by Evan Hampton Letter from James Shepherd SpinalColumn® The Magazine of Shepherd Center Shepherd Center 2020 Peachtree Road, NW Atlanta, Georgia 30309 404-352-2020 [email protected] www.spinalcolumn.org Editor Jane M. Sanders Dear Friends, Thirty years after my parents and I, along with Dr. David Apple, founded Shepherd Center, a Tennessee man began a similar journey to mine. Businessman Scot Ware experienced a massive stroke in 2005, and he came to Shepherd Center for more than three months of intensive rehabilitation. He came to Shepherd because of our outstanding reputation and outcomes – and because there was no specialized rehabilitation facility in his hometown south of Nashville. During his rehabilitation at Shepherd Center, Scot was impressed with the expertise and technology we provided – particularly a robotic locomotor training device called the Lokomat®. So Scot and his wife Sharon founded the WareCentre in Franklin, Tenn., to fulfill a mission similar to Shepherd Center’s outpatient wellness program called Beyond Therapy®. Its goal is to restore hope and offer new possibilities for people with neurological conditions by combining innovative equipment and expert staff for optimal recovery. The WareCentre filled a niche for many people in the middle Tennessee area, but the Wares wanted to expand, and they knew that Shepherd Center’s expertise could help make that possible. So Scot – who is now walking and driving again – and Sharon decided last year to gift the 10,000-square-foot, state-of-the-art facility and its high-tech therapeutic equipment to Shepherd. In September, it became part of Beyond Therapy® and the hospital’s first satellite clinic outside Atlanta. We believe this facility will help reduce our waiting list for Beyond Therapy® and meet a growing consumer interest in innovative rehabilitation therapies. Beyond Therapy® is an intense, activity-based Design Soloflight Design program that promotes improved health and wellness, as well as neurological recovery, for people with spinal cord injury, brain injury and other neuromuscular disorders. We started Beyond Therapy® in 2005, and it has served more than 150 people from 20 states and four foreign countries. The facility in Tennessee is following the same clinical guidelines and protocol as our facility on the main campus in Atlanta. So patients in Tennessee will experience the same program as they do in the hospital. We have received great support in Tennessee for this expansion – both from the medical community, as well as from donors who want to fund Beyond Therapy® services for people who need them, but don’t have the means to pay. This satellite facility represents a great opportunity for raising awareness of Shepherd Center’s excellent specialized care, and we look forward to seeing many successful patient outcomes in this new location. Members Fred V. Alias, Gregory P. Anderson, David F. Apple, Jr., M.D., C. Duncan Beard†, Brock Bowman, M.D.*, Wilma Bunch*, James M. Caswell, Jr., Sara S. Chapman, Clark Dean, John S. Dryman, Mitchell J. Fillhaber*, David H. Flint, Stephen B. Holleman*, Michael L. Jones, Ph.D.*, Tammy King*, Donald Peck Leslie, M.D., Douglas Lindauer, Bernie Marcus, Joseph R. Moderow, Julian B. Mohr, Charles T. Nunnally III, Sally D. Nunnally, Clyde Shepherd III, J. Harold Shepherd, Scott H. Sikes*, James E. Stephenson, James D. Thompson, Goodloe H. Yancey III† Warm regards, † James H. Shepherd, Jr. Chairman of the Board About the Cover: Jarrett Mason was the caregiver for his twin brother, Jerold Mason of Lithonia, Ga., after Jerold sustained a spinal cord injury in a car accident in late 2007. Photo by Gary Meek Contributing Writers Lauren Angelo, Sara Baxter, John Christensen, Rachel Franco, Bonnie Hardage, Ansley Martin, Dean Melcher, Anne Pearce, Bill Sanders, Scott Sikes Contributing Photographers Amy Smotherman Burgess, Leita Cowart, Thomas Elliott, Louie Favorite, Jim Fitts, Erin Gossom, Evan Hampton, Gary Meek Board of Directors James H. Shepherd, Jr., Chairman Gary Ulicny, Ph.D., President and CEO Emory A. Schwall, Vice President William C. Fowler, Treasurer Stephen B. Goot, Corporate Secretary Alana Shepherd, Recording Secretary * Ex Officio Emeritus Spinal Column is published quarterly by Shepherd Center, a private, not-for-profit hospital specializing in the treatment of people with spinal cord injury and disease, acquired brain injury, multiple sclerosis and other neuromuscular disorders, and urological problems. E-mail change of address information or request to be removed from our mailing list to [email protected], or by mail to Shepherd Center, Attn: Spinal Column Mailing List, 2020 Peachtree Road, NW, Atlanta, Georgia, 30309. Please include mailing label. Spinal Column accepts no advertising. Spinal Column is a registered trademark of Shepherd Center. w w w. s p i n a l c o l u m n . o r g Winter2011Contents SpinalColumn ® The Magazine of Shepherd Center: Providing Medical Treatment, Research and Rehabilitation 12 14 Remarkable Return to Work: School principal returns to work less than six months after being paralyzed in a shooting. Photo by Erin Gossom Cover Story 16 Beyond Trauma: Shepherd Center launches educational DVD series for newly injured people and their families. The Role of the Caregiver Shepherd Center trains and encourages patients’ loved ones to be good caregivers. Photo by Louie Favorite Features Another Step Forward: Shepherd Center enrolls first patient in national spinal cord injury stem cell clinical trial. 19 17 18 Supporting New Technology: Shepherd seeks to add new therapeutic equipment to advance patient care. Bike MS: Team Shepherd helps Cox Atlanta bike ride raise $1 million for MS. Departments 2 Short Takes 19 Research: ACTION Clinical Trial 20Patient Profile: Charlie Sweat 22Ask the Doc 23Medical Staff Profile: Payal Fadia, M.D. 24Shepherd Alums 26Foundation Features 42Tributes If you would like to make a gift to support the work you have read about, please contact Scott H. Sikes at the Shepherd Center Foundation at 404-350-7305 or visit shepherd.org. ShortTakes Photo by Gary Meek Shepherd Snapshots: A Look at News and Other Notes Above: John Anschutz, manager of the Shepherd Center Assistive Technology Center, recently received a prestigious research and engineering award for driver rehabilitation innovations. Assistive Technology Manager Honored with Prestigious Award John Anschutz, manager of the Shepherd Center Assistive Technology Center (ATC), recently received the Award for Research and Applied Engineering from the Association for Driver Rehabilitation Specialists. The competitive award is given to an individual, group or organization that has demonstrated outstanding accomplishments in research and applied engineering related to the mobility of a person with a disability. Anschutz, who has managed the ATC since 1995, has helped create comprehensive services for people with disabilities in wheeled seating and mobility, adapted driving services, and electronic aids for daily living and computer accessibility. “With a lifetime interest in technology and a bachelor of science in computer and information science from the Georgia Institute of Technology, John has demonstrated a great ability to review healthcare consumer needs and then create viable technology solutions,” says Gary Ulicny, Ph.D., CEO of Shepherd Center. — Jane M. Sanders New Book Celebrates Shepherd Center’s Success A new book titled “Shepherd Center: A Journey of Hope – Life Beyond Injury” has just been published to mark the hospital’s 35th anniversary. The book documents the past, present and future of Shepherd Center through a matrix of patient stories and color photos. The 168-page, coffee table book is largely a photo essay featuring 91 photographs of former Shepherd Center patients from all walks of life, spanning the Shepherd continuum of care from spinal cord and brain injury to multiple sclerosis and chronic pain. The book also chronicles the work of various Shepherd Center departments and services in sidebar articles. Atlanta writer John Yow wrote the text for the book, Atlanta photographer Billy Howard photographed the subjects and Laurie Shock of Shock Design Books designed the book. Copies of the new book can be purchased at the Shepherd Center Apothecary or shepherdstore.org for $39.95. The book is the culmination of two years of work by a Shepherd Center committee led by Scott Sikes, executive director of the Shepherd Center Foundation, and Perry Ann Williams, director of provider relations. Serving on the committee were hospital co-founders, Alana, Harold and James Shepherd, as well as Medical Director Emeritus, David Apple, M.D., Foundation special advisor Dell Sikes, and Foundation staff members Betty Gardner and Patty Golub. — Jane M. Sanders Shepherd Center Honored as Part of Haitian Amputee Coalition Donald Peck Leslie, M.D., works in a Haitian clinic. 2 Spinal Column The international organization Physicians for Peace recently honored the Haitian Amputee Coalition, of which Shepherd Center is a member, for its work in establishing a clinic to fabricate prosthetics for Haitian amputees and help them learn to walk again. Medical Director Donald Peck Leslie, M.D., and several Shepherd Center physical therapists made numerous trips to Haiti following the nation’s devastating earthquake in January 2010. They traveled there as part of the Haitian Amputee Coalition, a group that includes Atlanta businessman Harold Anderson, Ivan Sabel’s Hanger Orthopedics Group and the Catholic Medical Mission Board. The Haitian Amputee Coalition started a prosthetics clinic at Hospital Albert Schweitzer. It has fitted hundreds of injured Haitians injured for prosthetic limbs, primarily legs. For more information, see Haitian-amputee-coalition.org. — Jane M. Sanders w w w. s p i n a l c o l u m n . o r g for the second half of 2011 at several rehabilitation facilities, including Shepherd Center. At that time, eligible patients will have the opportunity to enroll in a medically supervised eLEGS gait training program. “Exoskeletal robotic orthoses, like ReWalk and eLEGS, offer a method for increasing ambulatory ability in spinal cord-injured individuals for whom current rehabilitation methods are Above: Representatives from inadequate,” says Keith Berkeley Bionics demonstrate a Tansey, M.D., Ph.D., director of bionic exoskeleton called eLEGS for spinal cord injury research at Shepherd Center staff and patients. Shepherd Center. “At present, they represent ‘substitution’ as a means to greater functional ability, but may be used in the future to augment ‘restoration’ or neurological recovery.” For more information on ReWalk, see www.argomedtec.com. For more information on eLEGS, see www.berkeleybionics.com. — Jane M. Sanders Shepherd Raises Awareness Among First Responders about People with Impaired Ability to Speak and Understand Words Photo by Leita Cowart Shepherd Center speech-language pathologist Tracey Wallace conducted an Aphasia Awareness Training Session Nov. 16, 2010 for Atlantaarea police, firefighters and emergency management Above: Former patient Ryan Bloyd technicians. assisted speech therapist Tracey Wallace in a presentation about aphasia. Aphasia, which often occurs after a stroke or brain injury, is an impaired ability to speak and understand words. About one million people in the United States have aphasia. The training is important to police and emergency personnel who may encounter people with aphasia during stressful situations. “Police can mistakenly think people with aphasia are drunk or trying not to be helpful,” Wallace says. “And it’s not uncommon for people with aphasia to become frustrated because they can’t say what they want to say, and instead unintentionally say something inappropriate. If the officers are not prepared for that, they might misunderstand, and it could change the tone of their interaction. “Also, there have been cases where people with aphasia were trying to report a crime or medical emergency, and they have difficulty explaining the problem,” she adds. Major Susan Miller, director of the Fulton County Public Safety Training Center, says civilian personnel also attended because they sometimes interact with people who have aphasia. Included in the training were tools and tips that will enable emergency personnel to communicate more easily with people who have the disorder. Also attending the session were several people with aphasia who gave participants first-hand experience with the condition. Among them was Ryan Bloyd, who was treated at Shepherd. The training was provided under the auspices of the National Aphasia Association. Funding for the training materials was provided by the Christopher and Dana Reeve Foundation. — John Christensen Winter 2011 3 Photo by Gary Meek Shepherd Center staff and patients were recently treated to live demonstrations of two new technologies that may provide enhanced mobility to people with spinal cord injuries and other conditions that affect the ability to walk. Argo Medical Technologies demonstrated its ReWalk™ system – an upright walking assistance tool that enables wheelchair users with lower-limb disabilities to stand, walk and climb stairs. It is being studied in clinical trials at MossRehab in Elkins Park, Pa., and may become available to Shepherd patients in the future. ReWalk is a walking device that consists of a robotic exoskeleton for the legs, a lightweight brace for the trunk and a rechargeable power pack. The device is worn around the legs and back and fits closely to the body on top of clothing. A concurrent use of forearm crutches stabilizes the upright user, who is able to independently power the device through an interface worn on the wrist and initiate movement and control the legs through simple body language. Also, Berkeley Bionics™ demonstrated the company’s new exoskeleton called eLEGS. It is a wearable, artificially intelligent, bionic device that assists users with standing and walking. Five years in development, the exoskeleton can be adjusted quickly to fit most people between 5 feet, 2 inches and 6 feet, 4 inches and weighing up to 220 pounds. Users must be able to self-transfer from their wheelchair. Clinical trials of eLEGS will begin early this year at select U.S. rehabilitation clinics. A limited release of the device is scheduled Photo by Name Goes Here ReWalk, eLEGS Technologies Demonstrated at Shepherd Center The Photo by Gary Meek CoverStory role of the caregiver Shepherd Center trains and encourages patients’ loved ones to be good caregivers – the kind with compassionate hearts, strong wills and true selflessness. By Bill Sanders f or some time now, Shepherd Center counselors, case managers, therapists, nurses and doctors have understood this essential truth: Taking care of the patient’s caregiver is a big part of caring for the patient. In most cases – certainly in the most serious of spinal cord and brain injuries – if a patient lacks a trained and dedicated support system at home, it hinders them from experiencing a life that’s as full as a person with the same injury who has that kind of support in place. It’s why Shepherd Center devotes so much time to training and encouraging the families of those injured. Right: After his twin brother, Jerold Mason of Lithonia, Ga., was paralyzed by a spinal cord injury in 2007, Jarrett Mason served as his brother’s caregiver for a year. 4 Spinal Column w w w. s p i n a l c o l u m n . o r g Winter 2011 5 Photo by Hollie Alderman Long Photo by Beth Tackett Left: Nancy Tharp of Winona, Miss., is the caregiver for her 29-year-old daughter Jodie, who sustained a severe traumatic brain injury in a car accident in 2004. Nancy was recently named Caregiver of the Year by the Brain Injury Association of Mississippi. “The role of a caregiver is essential for people with spinal cord and brain injuries, though the needs are different,” says Kathy Farris, occupational therapy manager in Shepherd’s Acquired Brain Injury (ABI) Program and chair of the And J.D. Frazier, 51 of Marietta, Ga., unable to move from the ABI/Neurospecialty Unit’s Family Education Committee. “So, family chest down because of a C-4 SCI he sustained 26 years ago, training starts from day one.” has had great professional caregivers through the years and is Of course, the role of caregiver varies from person to person, now in the business of seeing to it that others do, as well. depending on the nature of the injury and needs of the loved one. Now, these caregivers and former patients share their But all good caregivers have compassionate hearts, strong wills experiences and offer insight and encouragement for others. and true selflessness. Nancy Tharp of Winona, Miss., cringes a bit when people tell Once a Mother, Always a Mother her how amazing she is. It’s more than humility. She just doesn’t Nancy Tharp has a routine that borders on mundane and, view her role as caregiver for her 29-year-old, brain-injured thanks to a full-time job, is somewhat relentless. Almost every daughter, Jodie, as a sacrifice or something to working mother can relate, but for Nancy, be lauded. the difference is the additional role of Anne Hall, of Fayetteville, N.C., is the caregiver for her 29-year-old daughter, Jodie, primary caregiver for her fiancé, James who sustained a severe brain injury in an The role of Howard, 30, who sustained a C-6 to -7 spinal automobile accident nearly seven years ago. caregiver cord injury (SCI) in early 2008. If you tried to Jodie was a student at Ole Miss, majoring varies from tell her 18 months ago that she shouldn’t be in speech pathology. On her way back person to James’ sole caregiver – that someone else to school from a visit at home, she lost person, might be able to do a portion of the caregiving control of her car, ran off the road and then depending on duties as well as she did – she’d have told you overcorrected. Her car rolled, and she was the nature of how wrong you are. Her mind has changed thrown from the vehicle. the injury and now – at least somewhat. “One of the bystanders called from my needs of the Jerold Mason, 26, of Lithonia, Ga., has an daughter’s phone,” Nancy recalls. “There loved one. identical twin brother, Jarrett, who took care of was a nurse at the scene, by chance, and all I Jerold for a year after he sustained a C-6 to -7 knew was that she was being airlifted and that SCI in late 2007. Jarrett cared for his brother she was breathing. That’s all I knew.” She was while also working full time and having a young family of his own. flown to the Regional Medical Center. Jerold can hardly talk about his brother’s love and commitment After 26 days in Memphis, Jodie was admitted to Shepherd without choking up. “Words can’t describe it,” he says. Center. “That was the greatest thing ever,” Nancy says. 6 Spinal Column w w w. s p i n a l c o l u m n . o r g Photo by Erin Gossom At 6:30 a.m., Jodie will yell, “Mama!” The only time she says “Mama” is when she wants Nancy to come to her. Jodie’s speech is limited, but “Mama” and “I love you” are music to Nancy’s ears, she says. Nancy gets Jodie changed and fed and turns on her daughter’s beloved television. The caregiver arrives around 7:45 a.m. and three days a week, takes her to therapy. Nancy gets home around 5 p.m., and they eat, play Photo by Erin Gossom No one at Shepherd painted a falsely rosy picture of what lay ahead. But they left open the door that things could improve, Nancy recalls. And they also reminded her that even if Jodie’s condition never greatly improved, both mom and daughter could have a good life. “We knew she had a deep bruise to the brain, but no one knew what would happen,” she says. “The brain is going to do what it does. Dr. (Donald Peck) Leslie told us that medically speaking, she’d never be 100 percent. But then he said, ‘I can’t tell you that for certain. I’m not the one doing the healing, I’m doing the helping.’ I knew that when Dr. Leslie said that, we were in the right place. I know God is the one who performs miracles.” After about 10 weeks at Shepherd Center, the Tharps returned to Mississippi. Today, Jodie lives with Nancy and has a caregiver stay with her during the day while Nancy works. But Nancy is the primary caregiver and says she will be as long as it’s physically possible. In fact, Nancy was recently named Caregiver of the Year by the Brain Injury Association of Mississippi. “People ask if it’d be easier if she was in a facility,” Nancy says. “I’ve never even considered that, and as long as I can take care of her, there is no reason for her not to be at home.” A nurse in Memphis told Nancy she was about to embark on the biggest roller coaster ride of her life. She was right. “There are repetitive ups and downs,” she says. “But you never give up. If you do, you’ve lost. You’ve got to pay attention to what’s going on, look for things ahead of time that might be a problem, learn to ask questions and do research.” On a daily basis, the Tharps life goes like this: Left: Anne Hall is the caregiver for her fiancé, James Howard, of Fayetteville, N.C. He sustained a C-6 to -7 spinal cord injury in a diving accident in 2008. They have hired someone to help James with personal care a few times a week. Both plan to return to graduate school soon. games or paint, watch TV together and communicate in a manner they have both learned. Then, Nancy gets her ready for bed. That’s Monday through Friday. “On weekends, things are different,” Nancy says. “Wherever I go, Jodie goes. I can push her wheelchair and pull a buggy at Winter 2011 7 8 Spinal Column Photo by Louie Favorite Photo by Louie Favorite the grocery store at the same time. She likes to get out and see people. And she likes having her family and friends come over. She understands everything that’s going on. You can tell that.” At times, Nancy reflects about how things have been and looks ahead to how they will be. Mostly, though, she lives in the moment and wants to let everyone know that she and Jodie are fine. Though they struggle with the situation sometimes, their faith brings them peace and confidence. And Nancy is determined to give Jodie her best. “I’m realistic,” Nancy says. “If I give up, that’s it. I’m not going to give up. As a parent and an advocate, I have to fight for her because no one else can do it for her. Once you walk in these shoes, you want to help someone else walk a little easier, so however I can help others in this situation, I will. “It amazes me when people say how remarkable I am,” Nancy adds. “No, I’m a mama who’ll take care of her child. It’s not Below: J.D. Frazier of Marietta, Ga., sustained a C-4 spinal cord injury in a work-related fall 26 years ago. He has had great professional caregivers, including Monique Green (pictured), through the years and now has a business of helping others find them. Right: Nurse educators Joycelyn Craig, left, and Tamara Young, right, demonstrate a cough-assist procedure to caregiver Sharon Sasser. something special. Nothing is so monumental that I can’t handle it. Sometimes, I get scared, but I do the best I can. “We’re not like we were before the injury, but we’re a lot better off than a lot of people,” Nancy adds. “It has made our life different, but this is what God has for us to do, and we will do it.” A Fiancé’s Love James Howard and Anne Hall might have been married by now had James not sustained a spinal cord injury in a diving accident in February 2008. But don’t get the wrong idea. James’ injury has done nothing to diminish Anne’s love for him. If anything, it’s been strengthened through the trials and tests that a catastrophic injury can bring. James, a sevenyear member of the U.S. Army’s 82nd Airborne Division, was training for the Special Forces when he sustained an incomplete C-6 to -7 SCI in an off-duty diving accident. Today, he has plans to return to college and earn a graduate degree. Anne, who also plans to pursue a graduate degree, is James’ primary caregiver, as well as his fiancé. She knows now w w w. s p i n a l c o l u m n . o r g Photo by Gary Meek that being the sole caregiver of the one you plan to marry isn’t necessarily a good idea. “It affected our intimacy for a while when he became more of a patient than a partner,” Anne says. “We’ve been honest and open about both of our desires to keep those two things separate now. Once he became more independent, we started doing that. A lot of caregivers, like me, think they can do it better than anyone else. There was a level of stubbornness from me initially. “It really is a fine line that is important to walk, and it became blended in the first year and a half after James’ injury,” Anne explains. “But we were doing what needed to be done, and I’m proud of us for not letting it stop any of our routines, such as seeing family and traveling.” James has learned to dress himself, transfer into and out of his wheelchair, and recently, he began driving his adapted truck. He uses a manual chair away from home and has built up a tremendous amount of strength in his upper body. Brotherly Love “If you saw him, you might not know he is a quad,” Anne says. Jerold Mason’s first caregiver was his father. His next was his “He does a lot of things like a para does. Starting to drive again brother. What those two did for him, Jerold knows, cannot be paid was a huge step for him in getting some independence back.” back. Instead, he rests in the knowledge that he would have done James and Anne have hired someone to come in three times the same for his family if the situation had been reversed. a week for some personal care for James, and they look forward In December 2007, Jerold was in a car crash in California. A to a future of more independence, as well as time enjoying each speeding driver hit his car on a winding hill, causing his car to flip other’s company. and land on the passenger side. “We put our wedding on the back burner because, quite frankly, “The next thing I remember, I was waking up in a hospital with there were more important things than the ceremony,” Anne says. someone screwing screws into my halo,” Jerold recalls. “After that, “The commitment we’ve made already is as big as it gets, so we’ll the next thing I remember, I was waking up in Desert Regional probably wait until we move back home to Virginia to get married. Medical Center in Palm Springs, being told that I had passed away “After that, he’ll go back to grad school for civil engineering, twice, and had a pacemaker put in. Then in January 2008, I came and I’ll go back, too,” she adds. “My caring for him like this is to Shepherd.” short term. Within a year or so, we’ll both be Jerold had sustained a C-6 to -7 SCI. “The back in school, which will be good for us. only thing I could do at first was turn my head I’ll always have a role as caregiver, but he’ll from right to left,” he explains. “I couldn’t move “I’m not going become more independent. That’s a big my shoulders, hands or anything and couldn’t to give up. As a goal for both of us. We want to pursue goals feel anything. Keeping me limber was my first parent and an individually and together, and we’re both very goal at Shepherd. advocate, I supportive in that.” “Now, I can feel the top part of my shoulders, have to fight for In one of Anne’s journal entries, she writes from the chest up,” Jerold says. “Below that is a her because no about why she is committed to taking care of very dull sensation. I believe in God and think he one else can James: In the most simple terms, I believe in has bigger plans for me.” do it for her.” James and his resilience and commitment. And I For more than a year after the injury, Jerold’s — Nancy Tharp do it out of love and respect. brother, Jarrett, sacrificed all of his free time to Winter 2011 9 Photo by Gary Meek Below: Brain injury occupational therapy manager Kathy Farris discusses caregiving procedures with Kevin Kelly, father of patient Patrick Kelly of Queensbury, N.Y. take care of his twin. It was the kind of love, friendship and loyalty that defies words. “I bought a house in April 2009, and my brother moved his family into my home and started taking care of me,” Jerold says. “I know it was taxing on him, taking care of me, watching his kids during the day and working at night. He was working 16 to 17 hours a day.” Jarrett’s routine involved getting his brother out of bed, assisting with bowel care, bathing and dressing him, and taking him to doctor’s appointments and elsewhere. Meanwhile, Jarrett was an involved father, helping his children with homework and meeting their needs. Around 9 p.m., Jarrett went to work as a security guard. He’d return home at 6 a.m., get his kids ready for school, sleep a few hours and then start again. Saying ‘thank you’ to his brother seemed hollow to Jerold, but what more could he say? “I told him how much I appreciated it, but he didn’t want me to need for anything,” Jerold says. “He wanted to do as much as he could for me because he is my brother.” In 2010, Jerold got engaged, and Jarrett and his wife had another baby. So Jerold told his brother enough was enough. “My fiancé moved in, and I have a longtime friend of the family coming in to help now,” Jerold says. “My brother had to get some 1 0 Spinal Column time with his family and his new baby. We still see each other a couple of times a week. “I look back now and think, ‘How could I repay him? I wouldn’t know how to start,’” Jerold adds. A Caregiving Expert What James, Jodie and Jerold have experienced is caregiving that worked. It’s rarely that smooth, says J.D. Frazier, a complete quadriplegic who has employed numerous caregivers over the past 26 years and owns Para/Quad Services Inc., a business that provides caregivers to people with disabilities. J.D. took over Para/Quad several years ago after the retirement of his father, who started the business following his son’s injury. Now, he’s the owner and a client who faces the same challenges any other client faces. “Some people think that because I own a private home care provider business that I’ve been able to hand pick caregivers,” J.D. says. “Nothing could be further from the truth. My motto has always been to take the caregivers as they come and have them placed with me just like any other client would.” One challenge has been limits on the type of caregiver a person can employ using their disability benefits. But a new law in Georgia now allows a person to select their own caregiver, regardless of professional certification, and pay that person using disability payments. “It is almost unfathomable how much of a difference that is going to make in the relationship between a person with a disability, their family and the caregiver,” J.D. says. “For the first time, people who receive this type of care will be able to refuse caregivers they don’t choose to have around and choose the ones they want, including non-licensed caregivers who can be trained and chosen personally by the person receiving the care.” J.D. has had multiple caregivers through the years, including more than one at a time from more than one agency. Some of them worked out so well that he employed them for more than 10 years, with each of them assisting him at home, in his undergraduate and graduate schoolwork, and at his office. Caregiver Training Shepherd Center’s emphasis on educating patients and their families includes information on finding and training caregivers w w w. s p i n a l c o l u m n . o r g Photo Courtesy of J.D. Frazier – whether they are family members or professionals. Training involves classroom and handson sessions to teach family members about the injury, how to perform daily care for their loved one, where to find resources and what to expect as recovery progresses. “At the start of rehab we work with families to involve them with some small tasks that can help give them some control over things,” says Kathy Farris, occupational therapy manager in Shepherd’s Acquired Brain Injury Program. “They are contributing to their loved one’s care and gaining confidence in all the new things they are learning along they way.” For families of spinal cord injury patients, nurse educator Joycelyn Craig coordinates a lecture series with the goal of teaching patients and families about the injury and the care they will need after discharge from Shepherd. “The person seeking help needs to have more knowledge than the one they are hiring,” Craig says. “Few people have that kind of patient-specific knowledge, so we try to teach family members how to do various tasks so they can become the caregiver’s teacher.” The specific assistance a caregiver provides to a brain- or spinal cord-injured person can differ significantly, but finding the right caregiver – the one who fits into the injured person’s world – is critical, experts agree. When you find the right one, you have a gem. Tips on Finding a Good Caregiver J.D. Frazier, who has complete quadriplegia, has needed caregivers for more than 25 years. He also runs a business that provides caregivers who are based in a person’s home, and he’s the governor-appointed chairman of the Georgia Brain and Spinal Injury Trust Fund Commission. Here are his tips on finding and keeping a caregiver: • The skill set of the caregiver, not the licensing level, determines the quality of care. A non-licensed, or lower-level licensed, caregiver can cost less and be more effective than a higher-licensed one who might not fit into the family’s comfort zone. • Identify your own role and responsibilities in the caretaking process and communicate that information to everyone around you. Get feedback from your family on their privacy needs and boundaries, and then have the caregiver adjust their role to make the experience successful. • It’s like finding a spouse. You have to be careful and thorough, and then you go through a honeymoon period where both parties have to make sure it works. You have cultural, religious, political and work ethic differences, and they all become apparent. If you don’t know what you want, the caregiver won’t either. You’ve got to be clear on what you want. The best caregivers, regardless of certification, foster mutual respect and understand professional boundaries. • The ways in which you find the right caregiver are as varied as finding a spouse or a roommate. Word of mouth, bulletin boards and online lists are some approaches. Just like finding those other people, you have to be careful, though. • If you need someone to provide more than medical care, like many people do, make that clear upfront. Some caregivers will clean house, cook and run errands. Additional information is available from the following Websites and national organizations: • My Vital Connections (www.myvitalconnections.org) • National Family Caregivers Association (www.thefamilycaregiver.org) • Brain Injury Association of America (www.biausa.org) • National Spinal Cord Injury Association (www.spinalcord.org) • Christopher and Dana Reeve Foundation (www.christopherreeve.org) + To read this story and view more photographs online, visit www.spinalcolumn.org Winter 2011 1 1 Photo Courtesy of CIRM StemCellFeature Shepherd Center enrolls first patient in national spinal cord injury stem cell clinical trial. Photo Courtesy of CIRM By Jane M. Sanders Shepherd Center File Photo Another Step Forward in the Quest to Find a Cure for Paralysis In October 2010, Shepherd Center enrolled the first patient in an early-stage clinical research trial of a human embryonic stem cell-based therapy. The patient, who underwent rehabilitation at Shepherd, will be monitored closely for one year and then examined periodically for an additional 14 years. The Phase I clinical trial, which is the world’s first such study, will enroll up to 10 newly injured people nationwide who have sustained a complete, thoracic-level spinal cord injury. Participants, who will be treated with a therapy called GRNOPC1 at one of up to seven sites nationwide, must meet the study’s specific eligibility criteria listed online at www.clinicaltrials.gov. The study is sponsored by Geron Corporation (www.geron.com) of Menlo Park, Calif. “We are pleased to have our patients participating in this exciting research,” says Donald Peck Leslie, M.D., medical director of 1 2 Spinal Column Shepherd Center. “Our medical staff will evaluate the patients’ progress as part of this study. We look forward to participating in clinical trials that may help people with spinal cord injury.” David Apple, M.D., Shepherd Center’s medical director emeritus and principal investigator of this trial, adds: “This clinical trial represents another step forward in Shepherd Center’s involvement in an attempt to find a cure for paralysis in people with spinal cord injury. Shepherd Center is an ideal place to conduct this study because of our clinical expertise and the volume of patients referred here for rehabilitation care.” Geron’s president and CEO, Thomas B. Okarma, Ph.D., M.D., commented on the significance of this clinical trial in a news release in October. “Initiating the GRNOPC1 clinical trial is a milestone for the field of human embryonic stem cell (hESC)based therapies,” Okarma noted. “When we started working with hESCs in 1999, many predicted that it would be a number of decades before a cell therapy would be approved for human clinical trials. This accomplishment results from extensive research w w w. s p i n a l c o l u m n . o r g and development and a succession “When we started working with human Embryonic Stem of inventive steps… leading to Cells in 1999, many predicted that it would be a number concurrence by the U.S. Food and of decades before a cell therapy would be approved for Drug Administration (FDA) to initiate human clinical trials. This accomplishment results from the clinical trial.” extensive research and development and a succession of People enrolled in the trial will inventive steps.” — Thomas B. Okarma, Ph.D., M.D. undergo a surgical procedure to inject Geron’s stem cell-based therapy, called GRNOPC1, into the and nerve-growth stimulating properties leading to restoration of spinal cord. Shepherd Center participants in the study will then function in animal models of acute spinal cord injury, according to receive rehabilitation treatment and study follow-up assessments research published in the Journal of Neuroscience (Vol. 25) in 2005. at Shepherd. “Stem cell transplants could deliver immune modulating The trial is limited to newly injured adult patients with a complete or growth factors, eventually deliver therapeutic molecules, (American Spinal Injury Association, or ASIA, Impairment Scale potentially replace nerve cells or glial (support) cells, and/or grade A) thoracic-level (T-3 to T-10) spinal cord injury (SCI). even perhaps permit reconstitution of neural pathways across a Because GRNOPC1 must be administered within seven to 14 days neural injury,” says Keith Tansey, M.D., Ph.D., director of spinal after the injury, people who already have a spinal cord injury will not cord injury research at Shepherd Center and an investigator for be eligible to participate in this trial. the GRNOPC1 clinical trial at the hospital. “But we are in the very Researchers are evaluating patients who meet the study’s early days of this science and therapeutic approach, and we have detailed eligibility criteria with a set of specially designed patient a lot to learn. Early limited successes may occur before greater assessment tests. Then the study’s principal investigator at each effects are eventually realized.” site determines which patients are eligible to enroll. In addition to Shepherd Center, Northwestern Medicine in The Phase I clinical trial’s primary goal is to assess the Chicago, Ill., is also open for patient enrollment. As additional trial safety of GRNOPC1. The secondary goal is to follow the sites come online and are ready to enroll patients, they will be listed product’s ability to affect sensation or neuromuscular on the Patient Information pages of Geron’s Website at control in the trunk and lower extremities. Phase I www.geron.com/patients/clinicaltrials/hESC.aspx and on the NIH safety studies are not designed to provide efficacy clinical trials registry, ClinicalTrials.gov, at data, and patients may experience little or no benefit from clinicaltrials.gov/ct2/show/NCT01217008?term=GRNOPC1&rank=1. participation in this Phase I trial. GRNPOC1 is composed of oligodendrocyte progenitor cells (OPCs) derived from a human embryonic stem cell (hESC) line registered with the National Institutes of Health and obtained from Opposite Page, Top to Bottom: Human a donated in vitro fertilized blastocyst (very early stage embryo), embryonic stem cells which otherwise would have been destroyed. grow in culture. David OPCs give rise to oligodendrocytes, which make myelin, the Apple, M.D., is the insulation around nerve fibers that enables rapid conduction principal investigator of the clinical trial at of nerve signals. These cells have demonstrated remyelinating Shepherd. A colony of human embyronic stem cells (light blue) grow on fibroblasts (dark blue). Winter 2011 1 3 Photo by Amy Smotherman Burgess/ Knoxville News Sentinel ReturntoWorkFeature Remarkable Return to Work A school principal paralyzed in a shooting undergoes rehabilitation at Shepherd Center and returns to work less than six months after sustaining the injury. By Bill Sanders Principal Elisa Luna knows nothing will ever be quite the same at Inskip Elementary School in Knoxville, Tenn. – not for her, nor for assistant principal Amy Brace and probably not for any of the students who were at school on Feb. 10, 2010. Elisa and Amy were both shot by a teacher whom Elisa had just fired. “He didn’t care about hurting Amy, but he wanted me dead,” Elisa says. “When the paramedics got there, I knew I was dying. They thought I had died, and then when they were rushing me to the hospital, I almost died in the ambulance.” The shooting became national news. Soon, though, the focus shifted to whether the popular principal could ever return to Inskip. And people wondered whether the students would recover emotionally. 1 4 Spinal Column Elisa sustained a paralyzing, incomplete T-11 to -12 spinal cord injury in the shooting. She spent a week at the University of Tennessee Medical Center, then two months in rehabilitation at Shepherd Center. Then, less than six months after the shooting, Elisa returned to Inskip, about a month before the 2010-11 school year began. “I had to get back in the building and see if emotionally I was OK,” she says. “I definitely was not on my A-game, or like I used to be. I just had to see that I could drive there and take on a few tasks. My body and mentality were not ready yet, but getting in the building was huge.” Elisa’s rehabilitation at Shepherd, she says, is largely why she has been able to return to work. w w w. s p i n a l c o l u m n . o r g Photo by Amy Smotherman Burgess/ Knoxville News Sentinel Photo by Louie Favorite Photo by Louie Favorite Opposite Page: School principal Elisa Luna of Knoxville, Tenn., returns to work less than six months after a near-fatal shooting that left her paralyzed. Above: Elisa undergoes rehabilitation at Shepherd before returning to work. “At Shepherd, I had so much support,” she says. “I’m so glad I went there because of the experience level of the therapists and doctors and the array of services they have. They are not going to let you slip in any manner. It is a community there, and that’s what I needed. “I crashed a little when I left that high level of support and care,” Elisa adds. “It was like missing a parent. They saved my life and emotionally prepared me to come back to work and to home. I was well prepared when I left there.” That is music to the ears of Elisa’s treatment team members at Shepherd. But Elisa deserves much of the credit, they say. “From the first day we met Elisa, she was determined to go back to work,” says Shepherd Center physical therapist Jennifer Smith. “She wanted to do anything that would allow her to return as soon as possible. She had a significant amount of pain when she first came to us, but it didn’t limit her from performing the necessary activities. Not only was she determined to do everything she could in therapy, but she also took time during her day to talk with other patients and provided encouragement to those around her.” The road to recovery has been challenging for Elisa. She had complications that required surgery. And physicians were uncertain about the amount of function she would eventually recover. “They gave me no prognosis about whether I’d walk or not,” Elisa says. “When I left Shepherd, I still had no feeling below my hips. It wasn’t until after I got home that I started getting some sporadic feeling below my hips.” Little by little, she’s physically improved. She works a full day now from her wheelchair. The outer wounds are there for students and teachers to see. The inner wounds are something she discusses when she thinks it will help others heal emotionally. “I’m still not at full capacity like I used to be,” Elisa says. “I was a perfectionist, and now my body wears out before my brain does, but I am there everyday. I love the kids, the staff and the parents. A lot of people questioned how I could come back to this building. It was important to our staff and students to know that if they are coming back, that I could come back, too. “It’s still not normal, but we’re getting back to some sense of normal for the kids and the staff who have gone through a lot – particularly the kids who had this guy as a teacher,” Elisa says. “From time to time, kids will still tell me they missed me, or ask why did he shoot me, but mostly they just hug me. People want to help me. Even though I’m strong, and I’m their principal, they want to push my wheelchair and carry things for me. They need that.” Jill Montgomery, instructional coach at Inskip, has worked with Elisa for eight years. What she sees now in her boss and friend is inspiring, she says. “I’ve seen a shift this past year in her relaxation, and her priority list has changed,” Jill explains. “She is still focused and effective as a leader, but she stops more often to tell me or others how much she appreciates us. Her drive now is not only to make sure the school and students move forward and stay at the top, but also to make sure that she gets herself back to being the best leader possible, both with her physical rehabilitation and in the way she deals with people.” Elisa says the support she received following the shooting was nothing less than overwhelming and played an important role in her recovery. From across Tennessee and throughout the country, she got 60 to 70 letters and cards daily during her three months at Shepherd Center. She still gets tremendous support as her recovery continues, she adds. + To read this story and view more photographs online, visit www.spinalcolumn.org Winter 2011 1 5 DVDsFeature Beyond Trauma The Next Steps Shepherd Center launches comprehensive video package to educate patients and families about their new injury and post-trauma care. By Sara Baxter Images by KPKi Having a loved one with a life-altering brain or spinal cord injury is not only a terrifying experience, it can also be a bewildering one. To help those closest to patients find their way forward, Shepherd Center has developed a series of educational videos to be distributed to trauma centers around the nation. The videos, available on DVD and online, explain brain and spinal cord injuries, present options for care following the trauma center, and establish expectations for the weeks and months ahead. The DVD package – perhaps the first of its kind – will be distributed to trauma-care centers beginning in early 2011. It includes printed companion guides. The videos also will be available for viewing online. “The videos speak directly to recently injured people and their family members,” says Larry Bowie, Shepherd’s director of public relations. “The goal is to answer many of the questions they have about their injury and offer a clearer picture of what the rehabilitation process might entail.” The idea for the DVD package emerged from focus groups conducted with family members and patients, who said they wanted more information about the road ahead. “To serve this educational need, we began looking at what we could do to increase families’ comfort level while they are still in the trauma center,” says Mitch Fillhaber, Shepherd’s vice president of marketing and managed care. “We wanted to ease their anxiety about transitioning from the trauma center to rehabilitation. In some instances, they are coming from a life-ordeath situation in which they were living in the moment. We get them more focused on the future.” 1 6 Spinal Column Information on the DVDs provides a practical overview of spinal cord injury and brain injury, as well as an explanation of the care provided in the trauma center. Viewers may search the discs to find sections relevant to their injury – such as a complete or incomplete injury or a certain level of injury for spinal cord injuries, or traumatic or non-traumatic sections for brain injuries, and so on. Basic concepts are explained by experts from across the nation. Judy Fortin, a former anchor and medical correspondent for CNN and other news organizations, narrates the video presentations. Lee Woodruff, the wife of ABC News reporter Bob Woodruff, who was injured reporting on the war, also appears in the videos. To reach those in need of the information, Shepherd partnered with such organizations as the American Trauma Society, the Brain Injury Association of America, the National Spinal Cord Injury Association, and the Christopher & Dana Reeve Foundation. “We’re hoping that when people call these organizations for more information, the organizations will be proud to distribute the DVDs as means of educating newly injured people,” Fillhaber says. In fact, Shepherd plans to customize the DVD package for trauma care centers based on feedback from neurosurgeons and trauma care directors who believe it can assist their patients, Bowie says. The DVD series, which was created by KPKinteractive, an Atlantabased communications firm, is part of an overall educational initiative Shepherd has developed for trauma centers. Shepherd staff members already conduct hands-on clinical demonstrations in the trauma centers on subjects such as prevention of complications in spinal cord and brain injury patients. This past fall, the Center launched The Apex of Trauma Care, a magazine for trauma center professionals. It provides practical clinical information and research updates. The next step in the initiative was to reach out to patients through the educational DVDs. “We see the DVDs as a means to augment the information these centers are already providing,” Bowie says. “We want to be the best partner we can with the trauma centers to ultimately help patients and their families.” To view the videos online, visit spinalinjury101.org or braininjury101.org. Above: Among those appearing in a new educational DVD series are, Adam Seidner of Travelers Insurance, brain injury advocate Lee Woodruff and Rony Najjar, M.D., of Huntsville Hospital. w w w. s p i n a l c o l u m n . o r g NewEquipmentFeature Below, Left to Right: Among the new pieces of therapeutic equipment Shepherd Center hopes to purchase with donor funds are Hocoma’s Armeo®Spring, Bioness’ Zero G™ and Hocoma’s Erigo®. Initiative to Support New Technology Shepherd Center seeks to add new therapeutic equipment to advance patient care. | By Sara Baxter A hallmark of Shepherd Center’s rehabilitation care has been staying abreast of advances in therapeutic equipment. But it’s not enough to keep up with what’s current – Shepherd also makes every effort to provide patients with new technologies that support their goals for recovery and independence. Three such innovative technologies are the centerpiece of a $400,000 fundraising initiative that started this past fall. When complete, the campaign will fund the purchase of new equipment that has been tested and evaluated by patients and staff. It will enable Shepherd patients to: • use a non-robotic device to participate in upper-limb therapy while interacting with real-life activities on a computer; • strengthen gait, balance and endurance by walking overground along a defined path while supported by a harness attached to an overhead rail system; and • improve cardiovascular health and lower-limb muscle strength and activity while fully supported in more upright positions earlier in the recovery process. Here’s more on each of the three technologies Shepherd hopes to implement. Photo Courtesy of Hocoma Therapy meets the computer age. Hocoma’s Armeo®Spring is an arm exoskeleton that marries a therapy device to a computer-simulated, virtual reality environment. After placing an arm in a support system with a handgrip, the user ventures beyond repetitive back-andforth motions to practice everyday tasks, such as putting fruit into a basket or eggs into a frying pan. The machine also offers motion-sensor video games, making therapy potentially more engaging to people of all ages. “The patient has to generate the movement, and the arm is controlling what is going on in the computer,” explains Kathy Farris, therapy manager for Shepherd’s Acquired Brain Injury Unit. “It simulates real-life activities and gives the patient visual feedback and immediate task satisfaction.” This machine is good for all levels of function, though patients must have at least some motor strength. Photo by Leita Cowart Exploring Shepherd, literally. Patients who practice walking at Shepherd do so inside a single, defined space – and with the aid of several therapists or a robotic gait trainer. But ZeroG™, a new piece of equipment from Bioness, would allow patients to navigate a defined path through a Shepherd therapy gym while supported by a harness connected to a ceilingmounted trolley system. The system would provide intensive gait training and practice using everyday skills associated with walking. “This device gives therapists a better look at the patient’s quality of movement and provides practice walking overground naturally,” Farris says. “With the systems we have in place now, many therapists are needed to support the patient, and they cannot move as freely to challenge things such as balance or to react to obstacles in our path.” Photo by Leita Cowart An earlier start, a steadier pace. Hocoma’s Erigo® is an automated, adjustable “tilt table” that provides a head start for non-ambulatory patients who aren’t ready to fully participate in rehabilitation therapy. These patients, who may be in lower-level states of consciousness or face long-term immobilization, would use Erigo® to build strength and stamina slowly. The concept is simple: Patients are strapped to the table and move pedals that simulate stepping, even though they’re not yet fully upright. Over time, therapists adjust the tilt of the table to a level that is safe, but challenges patient progress. All three technologies would enable Shepherd to increase the intensity of its patient care. Moreover, the equipment purchase has been thoroughly researched, explains Bonnie Hardage, major gifts director in the Shepherd Center Foundation. “We’re putting a lot of thought into this,” she says. “We’ve researched all of the technology, involved clinicians and patients, and evaluated potential benefits from start to finish. All we need is for the community to respond.” To make a donation to this initiative, call 404-367-1238 or visit shepherd.org/charitable-giving. Winter 2011 1 7 MSRideFeature Bike MS Team Shepherd helps Cox Atlanta bike ride raise $1 million for MS. By Sara Baxter 1 8 Spinal Column Photo by DaveM Photography Photo by Sherri Perkerson Photo by DaveM Photography On a warm weekend this past X-ray image that transformed September, 117 Shepherd into a cycling kit and were the Center employees and supporttalk of the ride,” McCrory says. ers were among 1,300 cyclists Co-captain Angela Black who took to the streets in a helped with group training rides two-day,150-mile bike ride to and getting “newbies” comfortraise money and awareness for able on their bikes. Peachtree multiple sclerosis (MS). Bikes, Team Shepherd’s sponsor This is the largest team shop, was instrumental in faShepherd has had in the annual cilitating new riders, providing event, which helps fund proa meeting place and offering grams, services and research for discounts to team members. the National Multiple Sclerosis Besides the jerseys, the talk Society. Shepherd’s team was of the ride might also have been the second biggest team in the second rest stop on day the ride behind ride sponsor one of the ride. MS Institute Cox Communications and clinical staff members Melinda among other corporate teams Hodgson and Tawana Mitchell from Coca Cola, KPMG/ coordinated the pirate-themed Home Depot, UPS, Georgia rest stop complete with a pirate Power, Turner Broadcasting ship, music and pirates – inand Lockheed Martin. Team cluding physicians Ben Thrower, Shepherd more than $53,000. M.D., and Sherrill Loring, Above: More than 1,300 cyclists, including 117 from “While the current economic M.D. “Jack Sparrow, wenches Shepherd Center, participated in Bike MS to help raise money for programs, research and services provided by climate continues to threaten and other pirates were everythe National Multiple Sclerosis Society. charities like ours, I never cease where,” McCrory says. to be amazed at the generosity Peachtree Tri Club founder of individuals and organizaMari Fridenmaker and Safe tions like Shepherd Center that make a difference in the lives Haven for Pets founder Lucinda Shore recruited several cyclists of people living with MS,” says Roy Rangel, president of the to the expanding Shepherd team, helping Shepherd reach its Georgia chapter. With Shepherd’s support, Bike MS raised $1 goal of more than 100 cyclists. million. The team has become famous. McCrory reports “Team Shepherd has spirit and represents a promise that many organizations have called Shepherd Center “Team of hope for people with MS,” Rangel says. “We are about having the hospital’s team participate in their Shepherd proud to have such a great and inspirational team at charity rides. “However, the team’s main cycling has spirit and our event.” goal is to support the National MS Society, Georgia represents a promise Led by team captains Colleen McCrory, former Chapter by raising money and awareness for MS,” of hope for director of marketing and managed care, and Angela McCrory notes. people Black, rehabilitation equipment specialist, the team Team Shepherd will have an opportunity to ride with MS.” included Shepherd employees, Shepherd Center again in March 2011. This time, the ride will help — roy Rangel Society members, MS community physicians and MS Shepherd Center directly. The Dublin, Ga., Rotary patients, as well as external cycling groups. Club has made Shepherd Center the charitable ben“We had so much support from both our employees and the eficiary of its annual Rotary Club Century ride. “It looks like the community,” McCrory says. team will suit up again in their ethereal X-ray-inspired kits to Michael Dresdner, owner of HDS Vans, once again provided ride again for another great cause,” McCrory says. the team with cycling jerseys. “This year’s jerseys featured an w w w. s p i n a l c o l u m n . o r g Research ACTION Clinical Trial Shepherd Center researchers study effects of intensive exercise on neurological recovery. By Bill Sanders The clinical trial stems from research showing that highintensity exercise can provide tremendous benefits for people with incomplete spinal cord injuries (SCI). Now, Shepherd researchers want to know whether intensive exercise promotes neurological recovery. Shepherd researchers are more than halfway through the trial, which will enroll 50 people with incomplete SCI classified by the American Spinal Injury Association (ASIA) as a C or D injury. Sixteen patients have either completed or are undergoing the 24-week program. Nine are in a control group, meaning they are being monitored, but are waiting 24 weeks before they begin. Researchers continue to enroll healthy adults, ages 18 to 60, who meet the study criteria. The ACTION Trial is very demanding on patients, says research co-investigator Candy Tefertiller, DPT, ATP, NCS. “The dosage and intensity is incredible,” she explains. “It’s an exhausting combination of locomotor training, developmental sequencing, and strengthening and resistance training.” Research has shown recovery in people with incomplete SCI appears to be directly proportional to the exercise dosage – maybe even more so than the type of exercise. “The research suggests that immobility does not lead to recovery, but that high-dosage intense activity might facilitate some recovery of function even in chronic neurological injuries,” Tefertiller says. “Sometimes, the success has not been specific to the treatment intervention, but to the amount. Plus, this kind of exercise addresses the body as a whole. We’re doing core strengthening and building stable foundations, as well as facilitating an appropriate walking pattern. This allows restoration of some capabilities and can give some patients the ability to walk faster.” ACTION Trial participant Tonya Sheriff, 35, of Eastanollee, Ga., who sustained a C-3 to -5 incomplete SCI in a 1991 car accident, says the study’s exercise regimen was indeed difficult, but worthwhile. “I gave it every effort I had,” Tonya says. “I didn’t realize I could push my body as far as I did. However, I give credit to the research team for that because they pushed and encouraged me the whole way. “When I first began the ACTION Trial, I couldn’t walk and control a walker with wheels on my own or stand up on my own,” Tonya explains. “When I finished, I could stand from certain heights with assistance. Also, I started the program on the Lokomat (robotic locomotor training device) and was able to switch to a manual treadmill. Now that I am home, I Photo by Louie Favorite To those who have undergone rehabilitation at Shepherd Center, intensive exercise is an activity they know well. But for participants in Shepherd Center’s Crawford Research Institute ACTION Clinical Trial, intensive exercise has been ratcheted up to a new level. For 24 consecutive weeks, participants in this trial are undergoing a rigorous exercise regimen nine hours a week. Above: ACTION Clinical Trial participant Dave Jones works out under the guidance of Shepherd Center exercise specialist Nick Evans. am continuing to follow the exercise program I was given. It is a challenge to get in nine hours a week and work and plan a wedding. But I carve out time out to exercise.” The kind of exercise regimen under study in the ACTION Trial differs from Shepherd’s other rehabilitation efforts, notes Mike Jones, Ph.D., vice president of research and technology. “While therapeutic activity is a mainstay of rehabilitation, traditional therapy approaches are directed at compensation for – rather than restoration of – neurological function,” Jones says. “Rehabilitation after SCI has traditionally emphasized the use of the preserved and strongest muscles to achieve compensatory functioning. “Time and energy are usually not devoted to facilitating weaker muscles and promoting neural recovery,” he explains. “In contrast to conventional physical rehabilitation, activitybased therapies, such as the ones being studied in the ACTION Trial, are interventions that provide activation of the neuromuscular system below the level of the lesion with the goal of retraining the nervous system to recover specific motor tasks.” When the ACTION Trial is completed, researchers hope to know how to better treat patients who might benefit from such activity-based regimens. For more information on participating in Shepherd research, see www.shepherd.org/research and complete the intake form. + To read this story and view more photographs online, visit www.spinalcolumn.org Winter 2011 1 9 Photo by Jeff Hunt PatientProfile Drawn to the Wilderness Former brain injury patient credits both Shepherd Center and a nature preserve for his recovery. By Bill Sanders There’s no place Charlie Sweat would rather be than the very Charlie has spent much of his time – before, during and after place where he almost lost his life. his terms as mayor and city council member – advocating for For Charlie, the former mayor of Walterboro, S.C., a nearthe 842-acre Great Swamp Sanctuary, which is located within the fatal accident at the Great Swamp Sanctuary in Walterboro, Ashepoo, Combahee and South Edisto (ACE) Basin, the East has done nothing to lessen the park’s draw on Coast’s largest estuarine preserve. The Sanctuary is Charlie is like a him. In fact, there’s no place Charlie is more perhaps the only “braided creek” swamp accessible preacher when in his element than there, where birds chirp, to the public. he steps on deer wander through a thick forest and a Charlie has spearheaded efforts to raise the Sanctuary gentle breeze offers respite from the heat of a awareness of the Sanctuary and its beauty. He has grounds. His arms Lowcountry day. also helped raise funds for the preserve, including start waving, his voice crescendos money to build a network of boardwalks, hiking, “This place is very special to me, a place I and he starts couldn’t wait to get back to after the accident,” biking and canoe trails that run through it. Now, he is talking from the Charlie says. “It was instrumental in my working to raise funds to build an interpretive center heart. recovery, especially emotionally. Just listen to at the Sanctuary. the birds and the sounds. Even if I’m out here doing a tour, I’ll Charlie is like a preacher when he steps on the Sanctuary shut up and let the birds and animals take over if they are doing grounds. His arms start waving, his voice crescendos and he their thing.” starts talking from the heart. 2 0 Spinal Column w w w. s p i n a l c o l u m n . o r g Photo by Jeff Hunt “Just look at these trails and bridges going through this beautiful natural area,” he says. “It is so restful and peaceful that we just have to show people what we have here, that we are the green part of this community. People need to know about what we have here. We don’t have industry here; it has left the area. But we have this, and it’s great.” In 2007, Charlie was leading a tour of the park and had gotten off a golf cart to remove metal poles that protect a paved path from car traffic. When he did, the cart rolled backward. A passenger in the cart then tried to hit the brake, but instead hit the accelerator. The cart – with its three Photo by Jeff Hunt Left, Below and Right: Former Shepherd Center brain injury patient Charlie Sweat of Walterboro, S.C., credits Shepherd and the Great Swamp Sanctuary in Walterboro with his recovery from an injury he sustained while providing a tour of the nature preserve. passengers still seated – knocked Charlie to the ground and rolled on top of him. He sustained a traumatic brain injury and a broken ankle in the freakish accident. “The last thing I remember from that day, it was 9 a.m. and I was saying hello to my secretary and was getting ready to explain to some people the benefits of the park, the environmental aspects of it,” Charlie says. “The next thing I remember, I’m talking to my doctor and sister at Shepherd Center.” That was some six weeks after the accident. Charlie had been transferred to Shepherd for rehabilitation after receiving acute care at MUSC Medical Center and also Kindred Hospital in Charleston, S.C. “At Kindred, they had done ankle surgery on me and had drilled a hole in my head to relieve some of the swelling of my brain,” Charlie says. Charlie’s brain injury was significant, but then so was his recovery, says Gerald Bilsky, M.D., Charlie’s physician at Shepherd Center. “When he got to us, he was unresponsive, and it wasn’t clear what all had happened,” Dr. Bilsky recalls. “We had to take care of some acute things right away. But he turned around quickly, responded to therapy and medications, and in a lot of ways, exceeded what might have been expected.” Charlie’s sister, Betty Prather of Augusta, Ga., spent a lot of time with him at Shepherd and then had him move in with her for a while. Betty says the time with Charlie at her home was precious and is missed. The time at Shepherd, she says, was life-saving. “Everyone who works there has to be special,” she says, “because everyone has such a wonderful attitude. In time, Charlie began to really like it there and started trying to counsel others, giving hope as an elderly statesman there. I knew how wonderful it was from the beginning, but with a brain injury, it takes a while to warm up to new surroundings.” After living with his sister for a while and continuing therapy in Augusta, it was time for Charlie to return to his home in Walterboro. “It was hard when he left To support preservation and educational efforts for the Great Swamp Sanctuary, send donations to: Friends of the Great Swamp {a 501(c)(3) organization} P. O. Box 709 Walterboro, SC 29488 because I had really gotten used to having him around and spending time with him,” Betty says. She notices subtle differences in her brother’s personality since the injury, and doctors told them both that he’d never be 100 percent back to the old Charlie. Dr. Bilsky says Charlie made peace with his new reality fairly early in his recovery. “He’s not the politically savvy, patient, small-town mayor that he was before,” Dr. Bilsky says. “His ability to process a lot at once and deal with high-level complex matters is somewhat impaired, which would have proven to be a bit of an issue in returning to the work of running a city. “I think he was initially surprised when he didn’t function the same in those settings like he thought he would, but I think he’s OK with that now,” Dr. Bilsky adds. “He’s relatively independent and is a very engaging, likeable guy. I enjoy talking to him.” Upon returning home six months after the injury, one of the first things Charlie did was return to the Great Swamp Sanctuary. “I couldn’t drive yet, but I so much wanted to come back out here,” Charlie says. “I walked through town, talking to each merchant on my way to thank them for their support, and eventually I got here,” Charlie says. “I was sitting on the bridge thinking, ‘No one can understand the peace and tranquility of this place without being here.’” + To read this story and view more photographs online, visit www.spinalcolumn.org Winter 2011 2 1 Q+A ask the Doc Shepherd Center physicians answer medical questions from patients and family members. Q:Are there any supplements that I should take if I have neuropathic pain? A: Yes. Neuropathic, or nerve, pain is characterized by painful burning, tingling or electric shooting sensations, usually with an increased sensitivity to normal touch. It can arise from numerous problems, including injury (e.g., spinal cord injury and multiple sclerosis), malfunction of nerves associated with illness (e.g., diabetes, low thyroid), infections (e.g., shingles), pinched nerves and nutritional deficiencies. seek. To lose weight and keep it off, you need a simple knowledge of why you eat, what to eat and when to eat. I recommend a practical eating plan (PEP), which includes three nutritional meals and two snacks. The PEP is low in fat and high in dietary fiber that limits fatty foods and carbohydrates. Although predominately based on grains, fruits and vegetables, the diet also encourages the consumption of healthy fats and lean protein. Here’s the plan: ➊ lean protein — 25% • Four to six servings (2-3 ounces per serving) of lean turkey or ham, fish, poultry and red meat (sparingly) ➋ healthy fat — 25% • Low in saturated and trans fats and cholesterol • Two or three servings of nuts and/or seeds, totaling one ounce daily • Good oils (olive oil, canola oil, flax oil), 1-3 tablespoons daily All the B vitamins play crucial roles in promoting nerve health. ➌ complex carbohydrates — 50% Thiamine (B-1) and biotin (B-7) promote healthy nerves. • Six to eight servings of fruit, vegetables, legumes Riboflavin (B-2) aids in nerve insulation. Niacin (B-3) assists • Two or three servings of whole grains (1/2 cup = one serving) nervous system function, while pyridoxine (B-6) helps the body »B rown rice, kasha, wild rice, bulgur, couscous, oatmeal, use and absorb niacin and B-12. A lack of B-6 may cause whole-grain pasta, whole-grain bread or worsen nerve pain, but excessive use of B-6 can cause ➍ dietary fiber neuropathy. Cyanocobalamin (B-12) helps prevent nerve • 25-35 grams per day damage and promotes healthy nerve function. Low levels of • Fruits, vegetables and grains are packed with nutrients, have both B-12 and folic acid (B-9) can lead to neuropathic pain. few calories and are an excellent source of fiber. Other nutrients also keep nerves healthy and lessen nerve ➎ promotes exercise pain. They include inositol, lipoic acid and omega-3 fatty acid, • Balances calorie intake with calorie output which are crucial in repairing and making nerve cells in the spinal cord, brain and peripheral nerves. Magnesium can help Learning new eating habits, and avoiding old eating pitfalls, takes daily vigilance – mindful attention that you give to yourself and your alleviate nerve pain. Jamaica dogwood is a supplement that activities. Vigilance will come to be a source of pleasure and power is most beneficial in relieving severe, stabbing nerve pain. for you. But it can be toxic when consumed in excessive amounts, so patients should use it under a doctor’s supervision. — Arthur Simon, M.D There are many prescription medications for neuropathic pain, but these can also cause side effects such as sedation. Opiate pain medications (e.g., oxycodone/hydrocodone) are typically not the most appropriate choice for neuropathic pain and may actually increase nerve pain. Nutritional supplements for nerve pain can be an effective adjunct or alternative to medications. Relief from natural therapies can take one to 12 months. It is reasonable to begin medications, along with nutritional support, to achieve pain relief as quickly as possible. Submit your questions for “Ask the Doc” to [email protected]. — J. Tobias Musser, M.D Q:What kind of dieting should I do to lose weight so I will be healthy post-injury? A: “Diet” is a good word; it is the verb “dieting” that’s bad. Diet is the food we eat. Dieting implies negativity, failure and loss of self-worth. Instead, you need to concentrate on your diet. Consuming the proper foods in smaller portions with higher frequencies throughout the day will provide the benefits you 2 2 Spinal Column J. Tobias Musser, M.D., Physiatrist, Shepherd Pain Institute Arthur Simon, M.D., Medical Director, Plastic and Reconstructive Surgery, Shepherd Center w w w. s p i n a l c o l u m n . o r g Q&A Q+A with Payal Fadia, M.D., Physiatrist, Shepherd Center Acquired Brain Injury Program Interviewed by JANE SANDERS A: I always wanted to be a doctor. I loved my pediatrician, and he was my first inspiration. Watching him and other doctors help people made medicine a more appealing career choice to me than anything else I could have done with my life. Q:What drew you to the specialty of physical medicine and rehabilitation? A: I developed an interest in neurology initially. Then, during my residency, I did an elective rotation in physical medicine and rehabilitation (PM & R) and recognized the ability of PM & R physicians to take patients with neurological impairments to the next level of improvement in their recovery in a rehabilitation setting. Neurologists do wonderful things in diagnosing and treating conditions, but I like helping patients improve their quality of life through rehabilitation. PM & R physicians translate diagnostic information into functional outcomes to benefit the patient. Q:What is distinctive about Shepherd Center’s approach that helps people successfully rehabilitate from brain and/or spinal cord injuries? A: S hepherd Center is the third place in which I’ve practiced medicine since completing my training. What’s distinctive about Shepherd is the staff’s universal compassion and caring for the patient and family. We all have the same goal: We want what’s best for the patient, and Shepherd Center staff members have such a high degree of commitment to this goal. Everybody at Shepherd likes what they do. They’re happy in their jobs, and thus, they do them well. It’s a wonderful place to be. injury. There is also research studying the potential benefits of medications to assist with arousal, attention and improved cognition for people with brain injuries. In addition, advances are being made in robotics and neuromodulation therapies that hold promise. Shepherd is a great combination of research and clinical practice. Though it may be years before some research yields results, it does hold great promise. Q:What have you learned about yourself and others in the process of treating people with brain and/or spinal cord injuries? A:I’ve learned that the human spirit is resilient. We see people at the lowest point after their injury and watch them rise to the challenges and overcome great obstacles. It makes you believe in miracles. You see an inspiring strength of character in these patients. And you don’t take anything for granted. You appreciate life. Particularly in my adolescent patients, I’ve seen some with devastating injuries, and they are so resilient. You see their inner strength and determination combine with the healing of their brains and the benefits of rehabilitation. It is especially rewarding when we sometimes see our PREP (Pre-Rehabilitation and Education Program) patients emerge from a Rancho 2 (minimally conscious state) to a Rancho 5 or 6 at discharge and then continue to improve in our post-acute Shepherd Pathways program. To watch these patients begin to communicate and recover is amazing. INTERESTING FACTs: Payal Fadia, M.D. Photo by Louie Favorite Q:Why did you become a doctor? Also, there’s such an integrated team approach to treatment here. We treat not only the patient, but also the family. The family is drawn into the patient’s goals. The therapists, along with the nurses, case managers, neuropsychologists all bring to the treatment team a level of concern and compassion that ultimately helps patients and families reach their goals. Q:What promise does the future hold for improved treatments for people with brain and/or spinal cord injuries? A: T his is an exciting time to be in a place where clinical trials are under way that may have significant implications for improved treatments in the future. Shepherd Center is involved in clinical trials using stem cells to treat spinal cord Fellowship: University of Texas-Houston Residency: Baylor College of Medicine, Houston, Texas Medical School: St. Georges University School of Medicine, Grenada, West Indies Board Certification: Physical Medicine and Rehabilitation Experience: 8 years Random Facts: • Dr. Fadia and her husband have a 3-year-old daughter who Dr. Fadia describes as “amazing.” • She is an avid Florida Gators football fan, having earned her undergraduate degree at the University of Florida. • Dr. Fadia is an avid reader and especially enjoys the “Twilight” series of books. Winter 2011 2 3 ShepherdAlums By Kayla Eubanks Dan Savage of Cambridge, Mass. Jaya Franklin of Fairburn, Ga. Heidi Stuart of Wake Forest, N.C. Mitchell Cox of Tupelo, Miss. Mitchell Cox, CPA, has a smartsounding ring to it. A tax associate in one of the big-four accounting firms, Mitchell says he experiences only minor effects from the traumatic brain injury he sustained in July 2006. He has some minor nerve damage in his right hand, and he says he puts more thought into some cognitive tasks that used to come more easily to him. Mitchell, 24, of Tupelo, Miss., finished his degree and became a certified public accountant after recovering from the brain injury and a C-3 vertebrae fracture he sustained when his SUV tumbled multiple times. He’s come a long way in the four years since the accident. “I lost a lot of muscle weight that took time to put on,” Mitchell says. 2 4 Spinal Column FROM NEAR AND FAR Former Shepherd Center patients from across the nation report on their productive lives post-injury. “And it was tough getting the brain back into the habit of being that active. So it was a tough transition for a year and a half or so, and I’m not sure I’m totally back to that point now. I do have to work harder to get things than I used to. It had come naturally. But it’s mostly back.” Mitchell says his rehabilitation at Shepherd Center was an amazing experience. “Doctors didn’t sugarcoat things,” he says. “They told me it’d be a tough road, but that they’d be there for me and with me, and that I could get through it. It was a very encouraging atmosphere, and that was one of the biggest things for me.” Mitchell now lives and works in Memphis, Tenn. “I have family just an hour and half away and am living with some fraternity brothers from college,” he says. “I’m in a good place.” It took a while for doctors to diagnose Jaya Franklin, 26, of Fairburn, Ga., with acute disseminated encephalomyelitis (ADE) in March 2010. Once they did, though, Jaya was on her way to recovery. Jaya experienced a T-4 to -5 paralysis stemming from the condition that causes brain and spinal cord inflammation. She spent three months in rehabilitation at Shepherd Center and is now almost 80 percent back to where she wants to be. She’ll be at 100 percent when she finds the right job and living arrangements, she says. “I’ve made it this far because of God, my immediate family and my motivation to be back with my son,” Jaya adds. She was “living a normal life” when she awoke one day feeling a little bit off. Her condition deteriorated within several days. w w w. s p i n a l c o l u m n . o r g “By the time I checked into Emory Eastside Medical Center, I couldn’t walk,” she recalls. “No one knew what was wrong with me. Finally, an MRI found fluid and lesions on my brain and spinal cord. No one knows why I got it.” But once ADE was diagnosed, treatment and rehabilitation got under way. Jaya was motivated at Shepherd, both as an inpatient and in the day program, to walk again – unassisted. The Indianapolis native came home with a walker and soon put it away. “I would chase my son around and play with him,” she says. “I put the walker away because my balance was good enough to hold on to things, and I could move around by myself. I forced myself to learn to balance. Now, I’m driving and picking him up from school. I’m so thankful.” Jaya loves to write, a pastime that helped her deal with her condition. She is production director/editor of Visionary Artistry (www.visionaryartistrymag.com), an online magazine founded by her brother, J.Q. Franklin. Dan Savage, 27, lived right across from Shepherd Center and yet was driving two hours to Fort Gordon, in Augusta, Ga., to get treatment that wasn’t working for him, he says. Dan served in the U.S. Army and was deployed in Iraq from August 2007 to October 2008. While there, he was close to several explosions and came home with headaches, trouble sleeping, sensitivity to light and difficulty concentrating. “From the time I got back from Iraq until I finally got to Shepherd Center, I went through the military system trying to get the right care,” Dan explains. “Then I started getting therapy at Shepherd in April 2010 through the SHARE Initiative (for military personnel). I had a lot of dizziness and headaches and neck pain, and Dr. (Darryl) Kaelin and the physical and vestibular therapy really helped with that.” Dan recalls his frustrations before coming to Shepherd. “Sometimes I could barely do my job because my headaches and dizziness were so bad,” he says. “I’d come home from work and just lie on the couch. A lot of us out there are affected, and in the military system, there are not enough services to help us all effectively. Until I came to Shepherd Center, I never had a doctor who looked at all the symptoms as one problem and went to work figuring out how to deal with them all.” Now, Dan has separated from the Army and is pursuing a public policy degree at Harvard University’s Kennedy School of Government in Cambridge, Mass. The theme for his studies is built around John F. Kennedy’s famous quote: “Ask not what your country can do for you, but what you can do for your country.” Dan explains: “There are so many issues that need our efforts right now that I haven’t yet chosen a focus. Whether it’s professionally or just as a volunteer, I definitely plan to do work with other veterans, though, because there are a lot of guys out there suffering even worse symptoms than me. When the country asked for volunteers, they stood up and said ‘send me,’ so we owe them much more attention than what they’re currently getting.” When Heidi Stuart, 33, of Wake Forest, N.C., was diagnosed three years ago with a softball-size cancerous tumor – one that had eaten away at her spine and had attached to several organs – everyone’s first concern was for her life. When the tumor was removed, she began a second fight. Heidi was paralyzed below the T-7 level on her spinal cord. Today, Heidi is cancer free. And that’s not all. “I’ve been doing physical therapy for a long time now, and I’ve gotten to the place where I’m now walking with a cane in public and with nothing at home,” she says. “We keep hoping to get a little more improvement, so we keep pushing. Physical therapy is a daily commitment and probably will be for the rest of my life, but it’s been worth it.” Heidi spent two months at Shepherd Center in 2007 undergoing rehabilitation. She credits Shepherd with helping give her the life she has now. “I was so pleased with the place and experience and was blessed to be there,” Heidi says. “If not for the people and the help from Shepherd, I might not be where I am now.” Heidi, who spends most of her free time with her husband and 4-yearold daughter, has a scan every year to search for any signs that the cancer has returned. Since the surgery, all scans have been clear. “I have no cancer and no limitations,” Heidi says. “I can do whatever I want, and I do it with faith, hard work and a positive attitude.” Heidi is looking for ways to help others with spinal cord injuries (SCI). “I think sharing my experiences, resources, medical suppliers, doctors, etc. is a great first step,” she says. “If anyone can be helped by what I have learned, then I will be happy.” What’s New? We want to stay current on any personal or professional news in your life. Send us an update and a photo (we’ll return it to you): Jane Sanders, Spinal Column Magazine, 2020 Peachtree Rd., N.W., Atlanta, GA, 30309. You can also e-mail us at [email protected]. Winter 2011 2 5 FoundationFeatures Photo by Gary Meek Winter 2011 my schedule. Also, the members I met at the fall coffee function were so welcoming. I was hooked!” Marla began volunteering for the Auxiliary in 2006 and became president in 2009. In her role as president, Marla brainstorms fundraising ideas, selects individuals to head committees, leads her fellow Auxiliary members in implementing fundraisers and ensures that the group meets its fundraising goals. “Volunteering at Shepherd has not only made me more aware of the issues people with spinal cord or brain injuries face, but has also enhanced my life tremendously.” — Marla Bennett Volunteer Profile Marla Bennett Atlanta native discovers her (volunteer) purpose right in her backyard. By Rachel Franco Sometimes the answer to our prayers is right in front of us without our even knowing it. At least this was the case for Marla Bennett, president of the Shepherd Center Auxiliary, a volunteer group whose primary mission is fundraising for the hospital. After staying home for many years to raise her two children and to take care of aging parents, Marla, an Atlanta native, found herself at a crossroads and was praying about what to do in the next stage of her life, she recalls. The answer turned out to be right in Marla’s backyard – in Atlanta – and came to her by way of her daughter, Elizabeth, who, as a 2006 Phoenix Society of Atlanta debutante, volunteered at Shepherd. It was during a tour of the hospital for the debutantes and their parents that Marla discovered Shepherd and was tremendously impressed by it. Both the tour and an introduction letter from the president of the Auxiliary at that time prompted Marla to volunteer. “I chose the Auxiliary because of its flexibility,” she says. “I could work a shift here and there, according to what worked with 2 6 Spinal Column Pecans on Peachtree® is the Auxiliary’s primary fundraiser. From November through Christmas Eve each year, the Auxiliary sells numerous varieties of pecans. This year, Pecans on Peachtree is expected to raise $60,000 to $70,000, adding to the $4,521,675 the Auxiliary has raised for the hospital since 1983. The group brings in additional funds through smaller fundraisers such as sales of baked goods, jewelry, purses and other items. All funds raised support initiatives that enhance care for patients and their families. Without the Auxiliary’s support, many of these initiatives might not be funded. Volunteering at Shepherd is incredibly fulfilling for Marla. “In addition to seeing the difference that the hospital makes in the lives of its patients, I’ve met a lot of great people at Shepherd,” Marla says. “Volunteering at Shepherd has not only made me more aware of the issues people with spinal cord or brain injuries face, but has also enhanced my life tremendously.” Midge Tracy, director of Volunteer Services at Shepherd, says Marla has equally enhanced the lives of people at the hospital. “Marla’s compassion, absolute dedication to the hospital and her presence – she’s always smiling – make her an invaluable asset to Shepherd,” Midge says. “Marla loves what she does, and it shows.” Marla hopes to encourage others to get involved with the Auxiliary, which she describes as a great group of people wanting to make a difference and having fun while doing so. For information about the Shepherd Center Auxiliary, call 404-350-7315 or visit shepherd.org/volunteer. Above: Marla Bennett, right, who has volunteered for the Shepherd Center Auxiliary since 2006, discusses plans with Volunteer Services director Midge Tracy. w w w. s p i n a l c o l u m n . o r g Photos by Donn Jones Expanded Reach of Shepherd Center’s Helping Spirit Shepherd Center’s Beyond Therapy® opens in Tennessee | By Bonnie Hardage The remarkable Shepherd Center spirit of helping others – which encompasses patients helping patients, families helping families, and staff members and volunteers going beyond the call of duty – reached beyond the hospital’s campus recently with the opening of Beyond Therapy® in Franklin, Tenn., just south of Nashville. The facility opened in September 2010 and welcomed community members and donors in an open house event on Oct. 28. More than 150 people attended. Making the facility possible was Scot Ware, who was a brain injury patient at Shepherd Center in 2005. He and his wife Sharon donated the 10,000-square-foot WareCentre™ to Shepherd in 2010. The facility includes an outpatient therapy gym and high-tech therapeutic equipment worth nearly $1 million. As a result of this donation, Shepherd Center opened the first Beyond Therapy® rehabilitation program outside of Georgia. Beyond Therapy® is an intense, activitybased Shepherd program that promotes improved health and wellness, as well as neurological recovery. It helps people with spinal cord injury, brain injury, stroke, cerebral palsy, multiple sclerosis and other neuromuscular disorders. At the open house, Mayor John Schroer of Franklin joined Scot and Sharon Ware and James Shepherd, hospital co-founder and chairman of the Board of Directors, in an official ribbon-cutting ceremony. “Shepherd Center was my family’s only beacon in a time of limited possibilities for me,” Scot says. “Without their therapy and personal care, I doubt that I would be standing here talking with you today.” After his discharge from Shepherd Center, Scot and his family decided to take what they learned at Shepherd and make it available to middle Tennessee, imitating the culture they observed at Shepherd. “Donating the WareCentre™ to Shepherd was an easy decision,” Scot says. “We are so pleased and honored to have our mission become part of a wonderful, forward-moving organization.” Shepherd Center CEO Gary Ulicny, Ph.D., is grateful for the opportunity, as well. “Because of Scot’s donation, this is a natural progression for the Beyond Therapy® program,” he says. “The program has a two-year waiting list, and we can now offer another access point for patients to consider.” At the open house event, the Shepherd Center Foundation announced a $400,000 fundraising campaign to support local scholarships and equipment needed to enhance the program. “we can now offer another access point for patients to consider.” — gary ulicny, ph.d. “We have been blessed with a generous lead gift of $100,000 from Moll and Charles Anderson,” James Shepherd says. “I continued to be surprised by the strength and spirit of each individual and their family as they move through our hospital. Because of support from the donor community, we are able to expand our powerful mission to Tennessee, and we are honored to be in the Nashville area.” Above, Clockwise from Top: Shepherd Center co-founder Alana Shepherd visits with Sharon and Scot Ware. Shepherd Center co-founder James Shepherd, center, cuts the ribbon at the Tennessee facility. CEO Gary Ulicny greets open house visitors. Winter 2011 2 7 FoundationFeatures A G U t a d r e h p e h S m a e T raise money work topatients. students College Shepherd Center for lo n Ange re By Lau o an are tw m h s a C se f Georgia ef and Eli o y it s r e iv Justin Le n their ordinary U volved in in y r e v seemingly oth th They’re b y, they bo it r o r o s d students. y an they both e fraternit v d ti n c a e , p s s g e r lldo ents eorgia Bu d excitem G n e a th s e e s v s lo tre nt. veryday s ge stude e e ll e o th c e a r f a o sh e life mpany th o c c red in a t a th ey’ve sha e vision th ped “My vision is to grow a viral, minimal contribution effort that adds up.” — Justin Leef 2 8 Spinal Column velo r, is th group de , howeve ilanthropic o ordinary h s t p o s to build A n rk G s o t’ U Wha p also w erd – a u h p ro e g h e S h am and nter. T ens, Ga., creating Te pherd Ce nity in Ath u y for She e m n area. o m o ta m c n e a to rais etro Atl the UGA m n e e e th tw in e with rd ips b t Shephe upporters relationsh ard abou s many s e it h d d n a a f h e , rd st Le Shephe in Atlanta ers Forre t o grew up r support te n e C ess abou Justin, wh n rd hephe ’s aware S n , ti ts s n u J re t rg a u o .D. B e Ge ia from his p Veazey, th ell-Leef, M h e c c it n M a h y C th motor when and Doro lved in a o in college v d in e s u a iq w p an, Shepherd from the nd basem paralyzed m’s seco a im te h ll ft a le b t e bas 9 tha herd, and ent in 200 t at Shep n id e c ti c a a p r a te e m, scoo e becam seball tea n. Chanc on the ba s ile d n waist dow ie d fr e ny ceiv wh o had ma Chance re re a c g Justin, wh in tand f the outs learned o erd. at Sheph w w w. s p i n a l c o l u m n . o r g Knowing that Shepherd cofounder James Shepherd was a UGA alumnus, Justin assumed an organization on campus already existed to raise funds for Shepherd. After doing his research, however, Justin learned that such an organization didn’t exist. He decided that he would be the one to create something. And in early 2010, Team Shepherd began. Justin’s first step was to contact Scott Sikes, executive director of Shepherd Center Foundation, and arrange a tour of the hospital. Justin’s high opinion of Shepherd was reaffirmed after meeting several patients and seeing the care they received. He spoke with Scott about his idea to begin an organization that would raise funds for Shepherd, and Scott supported it. Justin recruited Elise Cashman, who is very involved at UGA and who he knew would be able to help build Team Shepherd from the ground up. Elise had been involved in other philanthropic organizations on campus, but felt like she needed a breath of fresh air. “After visiting the Center, I was immediately sold by the ambience of the facility, as well as the positive attitudes of the patients and their families,” Elise says. Justin and Elise then got to work creating Team Shepherd. They received a startup fund from Shepherd and created a name, logo and Website. They also recruited a faculty advisor, Greg Daniels, who is one of the senior development officers at UGA. Now, they are working with several fraternities and sororities on campus, hoping those that don’t have a substantial philanthropic cause will adopt Team Shepherd and direct proceeds from their fundraising activities to Shepherd Center. “My vision is to grow a viral, minimal contribution effort that adds up,” Justin says. “Shepherd receives most of its contributions from the Atlanta area, but small donations outside Atlanta can add up and help, too.” Small donations can, indeed, add up, if Team Shepherd rises to the expectations that Scott, Justin and Elise have for the organization. “My vision is to inspire a new generation of financial support for Shepherd Center,” Justin says. “I would like to build a model that other schools can use to get involved.” Scott also believes in the potential that this group has to be a model for other colleges and universities. “Because Shepherd Center’s patients come from all over the country, this group at UGA may be creating a template that could be followed by other student groups across the nation,” he explains. “Imagine the long-term positive impact this would have.” Justin and Elise have many activities planned as they begin to bring Shepherd and UGA closer together. During the Shepherd Shoot-Out wheelchair basketball tournament in November 2010, 14 UGA students traveled to Shepherd to volunteer and meet patients. They fell in love with Shepherd just as Justin and Elise did. Team Shepherd also plans to host a party centered on a UGA sporting event and invite patients and their families to watch a game on TV with students. “My goal is to see people on this campus appreciate all that Shepherd does,” Elise says. “To see these patients as any less than hopeful, persistent and wonderful beings is a tragedy. It is for this reason that we value face time – to allow students to see each patient’s drive and desire to live a normal, functioning life.” Team Shepherd accepts gifts ranging from $1 to $249 via their website www.teamshepherd.org, or through Justin and Elise. Gifts greater than $250 can be sent directly to the Shepherd Center Foundation, where there is a Team Shepherd account. Above: University of Georgia students Justin Leef and Elise Cashman (inset) have started Team Shepherd to help raise funds for and awareness of Shepherd Center on campus. Winter 2011 2 9 FoundationFeatures Getting Outdoors Adaptive ski trip and Adventure Skills Workshop offer recreational opportunities for people with physical and cognitive disabilities. By Lauren Angelo Shepherd Center is known for offering outstanding rehabilitation care, but it’s also known for providing multiple opportunities to patients and community members to explore new and exciting activities, like wheelchair rugby, adaptive scuba trips, and the annual Wheelchair Division of the Peachtree Road Race. Two upcoming events offering opportunities to take former patients and community members outdoors are the annual snow skiing trip to Colorado in February and the Adventure Skills Workshop in Jackson Gap, Ala., in May. The 2011 ski trip, which is already fully booked for this year, is scheduled for Feb. 11-16. Participants receive lessons from a private instructor during all four days of the trip. Instructors help participants learn to use one of two styles of sit skis – the mono-ski, or the bi-ski. With each ski set-up, an individual sits in a plastic bucket seat that is attached to the ski with a snowboardstyle binding. The mono-ski is typically used by more advanced skiers, while the bi-ski is helpful to people who are new to skiing and struggling with turning and balance. Katie Murphy, the Shepherd Center therapeutic recreation therapist who will be leading the ski trip, describes it as a wonderful experience where people with and without disabilities come together to do what they love. “They are experiencing life as anyone else would,” Katie says. “Through this amazing trip, they are able to see the many opportunities that lie ahead of them.” For information about next year’s ski trip, contact Katie at katie_murphy@shepherd. org, or 404-350-7465. The Adventure Skills Workshop (ASW) is scheduled for May 20-22, 2011 at Camp ASCCA, an accessible facility located on Lake Martin near Jackson’s Gap, Ala. ASW is a fun-filled weekend designed for people with spinal cord injury or disease, acquired brain injury, multiple sclerosis, spina bifida, post-polio syndrome, Guillain-Barré Syndrome, transverse myelitis or ALS. Participants have the opportunity to enjoy 3 0 Spinal Column more than 14 adaptive activities, including water skiing, jet skiing, a climbing wall and rides on all-terrain vehicles. “This camp is the chance of a lifetime for many people,” says Kelly Edens, manager of the Therapeutic Recreation Department at Shepherd. “This past year, half of participants at the Adventure Skills Workshop were new to the event. Many of them had never experienced life outside of their wheelchairs. It is so neat to see the faces of the participants and their families when they feel like they can live life again and be ‘normal.’” Registration for the workshop will begin in February and continue through May, although space is limited. The cost is $165 for participants and includes meals, lodging, activities, instruction and a T-shirt. The cost for family members is $150 and also includes lodging, meals and a T-shirt. Participants will be able to register online at shepherd.org/asw or by calling 404-350-7375. Above: Former Shepherd Center patients participate in adaptive snow skiing on an annual trip to Colorado. Inset: Shepherd’s annual Adventure Skills Workshop held in May always attracts a big group of former patients and their families. w w w. s p i n a l c o l u m n . o r g Legendary Patrons and Sponsors Get Royal Treatment at Patron Party lous event that featured live music by an ensemble with strings and harpsichord, beautiful flowers by Parties 2 Die For and a spectacular gourmet cocktail buffet fit for a king. David Covell of Avenue Catering Concepts and Bill Hewett of Hewett and Saxon Catering collaborated on a remarkable menu that included Avenue’s lobster Newburg, beof bourguignon, paté selections and a tantalizing dessert buffet. Chef Bill contributed pan-seared scallops over pureed cauliflower finished with truffled brown butter and a selection of French country-style patés. — Dean Melcher Photos by Jim Fitts Each September, Legendary Party Sponsors and Patrons are treated to the Patron Party, a special recognition event to both thank them for their support of the ball and to give them a preview of what’s in store at the November Gala. The 2010 Patron Party, held on Sept. 23, was an elegant and fun event hosted by Buckhead residents and Legendary Party Sponsors Connie and Mark Hawn in their lovely home. Patron Party Committee members Brenda Smith and Susan White assisted ball Chairman Dorothy Mitchell-Leef, M.D., in planning and arranging a fabu- patron party co-chairmen Brenda Smith and Susan White patron party hosts Connie and Mark Hawn Above, Clockwise from Top: Patron Party Co-Chair Brenda Smith and her husband Dick attend the Patron Party. Also enjoying the gathering are Chairman Dorothy Mitchell-Leef, M.D., left, her husband Forrest Leef and hostess Connie Hawn. Left to right, Patron Party Co-Chair Susan White and her husband Tony enjoy the Party with their daughter Elizabeth Morris and her husband Christopher. Winter 2011 3 1 3 2 Spinal Column Photo by Jim Fitts Photo by Thomas Elliot Photo by Jim Fitts Photo by Jim Fitts FoundationFeatures w w w. s p i n a l c o l u m n . o r g e Th L Leg endary Party 2 010 AnEvening Fit forK a ing ouis XIV himself couldn’t have imagined a better party than The Legendary Party 2010. Ball Chair Dorothy Mitchell-Leef, M.D., promised an event fit for a king, and she certainly delivered! The evening was a truly beautiful night featuring breath-taking décor, fabulous food and remarkable entertainment. “Legend of The Sun King, Reflections of Versailles,” a French-themed event, was a delight that combined Versailles’ famed gardens, Louis’ royal elegance and a great deal of fun for all. Guests entered through 14-foot gilded gates and strolled among beautiful antique statuary, fountains and mirror works – all graciously provided by Bruce Cusmano and Metropolitan Artifacts. Beautiful florals cascaded everywhere, and the Grand Ballroom was filled with gold and flowers. All eyes were drawn to a fabulous backdrop featuring a painting of Versaille itself – all the genius and hard work of Kathy Rainer and Tricky Wolfes of Parties 2 Die For. A gloriously costumed Louis XIV welcomed guests with a proclamation in French. Shepherd Center co-founder and Chairman of the Board James Shepherd thanked Dorothy and Chairmen-elect Cindy and Bill Voyles for all their effort and support. He then recognized and thanked Honorary Chairman Eula Carlos and the Carlos family for their years of dedicated support, including establishment of the Andrew C. Carlos MS Institute at Shepherd and the Endowed Chair for MS Research at the Center. Guests dined on a marvelous, classic French meal of mushroom and foie gras vol au vent and tenderloin and butter-poached lobster. National Distributing Co. generously provided wine for the night. The entertainment was non-stop fun as guests were welcomed by a costumed string quartet. During the meal, diners enjoyed conversation as formally attired strings played beautiful classical music in the background. Once dessert was served, Simply Irresistible took the stage and provided a deep catalog of dance music, from Motown to modern day, that kept the dance floor filled all night. This year’s Party raised more than $675,000 for patient programs at Shepherd. Planning is under way for The Legendary Party 2011. For information or to join the committee, email Cara Puckett at [email protected] or call her at 404-350-7778. To view more pictures, please visit www.TheLegendaryParty.com. — Dean Melcher Clockwise from Top Left: Chairman Dorothy Mitchell-Leef, M.D., second from left, and her husband Forrest Leef welcome Honorary Chairman Eula Carlos and Chairmen-elect Cindy and Bill Voyles. Legendary Party honorees, the Carlos Family are, from left, standing: Drew Carlos with her father, Jimmy Carlos, Helen Carlos and Ron Hilliard, Elaine Carlos; seated: Eula Carlos and John Carlos. Silver Sponsors Sam and Vivian DuBose and Lynn Caldwell-Shearer and Bill Shearer in the Ballroom. Left to right are Chairmen-elect Bill and Cindy Voyles, Forest Leef, Chairman Dorothy Mitchell-Leef, M.D., Fundraising Co-Chairmen Steve Lore (back row) and Cyndae Arrendale (foreground), and Ladies and Gentlemen’s Committee Chairmen Eli and Heather Flint. Winter 2011 3 3 FoundationFeatures • Chairman he Legendary Party 2010 Committee Dorothy Mitchell-Leef, M.D. Honorary Chairman Eula Carlos Chairmen-Elect Cindy and Bill Voyles Fundraising Co-Chairmen Cyndae Arrendale and Steve Lore Corporate Sponsorship Co-Chairmen Jane Bedford and Lisa Boone Ladies and Gentlemen’s Committee Chairmen Heather and Eli Flint Legendary Party Committee Elizabeth Allen Ruth Anthony David Apple, M.D. Shellie Arnold Evis Babo Melanie Birchfield Polly Bowman Lynn Caldwell-Shearer Helen Calvert Elaine and John Carlos Helen A. Carlos Helen S. Carlos Sara Chapman Denise Cohen Sherri Crawford Pam D’Andria Faye Donaldson Sally Dorsey Beverly Douglas, M.D. Diane Evans Debbie Goot Anne Hux Anne Jones Valery Voyles Jordan Tish Lanier Donald P. Leslie, M.D. Jayne Lipman Susan McCaffrey Leslie McLeod Elisabeth Merchant Evelyn Mims Beverly Mitchell Elizabeth Morris Linda and Tom Morris Juli Owens Lois Puckett Jane Puskas, DMD Kay Quigley Holly Rhodes Jack Sawyer • Vickie Scaljon Emory Schwall Dana Shepherd Dell Sikes Jane Skinner Pam Smart Rebecca Smith Brenda Smith Claire Smith Karen Spiegel Gloria Stone Karen Sturm Carolyn Tanner Carol Thompson Sally Tomlinson Terry Vawter Jody Weatherly Rebecca Webb June Weitnauer Susan White Winston Wiant omas Elliot Photo by Th Photo by Th omas Elliot Rendez Vous with Fun 3 4 Spinal Column Legendary Late Night is always a highenergy, full-blast party, and Rendez Vous was no exception. Just as The Legendary Party crowd was enjoying coffee and dessert in The RitzCarlton’s Grand Ballroom, an entirely new crowd was checking in to get their party started. Shepherd Center Society and Junior Committee members and their guests arrived in style fresh from their preparties to enjoy cocktails and karaoke, as well as dancing to Simply Irrisistible in the ballroom. Guests of both parties mixed and mingled, and many wound up catching their breath in the Gallery, which featured Robert Ray on the piano and a yummy waffle/crepe bar. Legendary Late Night is always a great time, and this year was no exception as guests enjoyed non-stop fun in four rooms and did their part to make The Legendary Party 2010 a smashing success. — Dean Melcher w w w. s p i n a l c o l u m n . o r g • he Legendary Party 2010Sponsors • Mrs. Helen A. Carlos and Mr. Ron Hilliard Mr. and Mrs. James A. Carlos Cooper-Atlanta Transportation Services, Inc. National Distributing Company, Inc. Mr. and Mrs. David Ratcliffe Metropolitan Artifacts, Inc., and Bruce Cusmano Neiman Marcus Reproductive Biology Associates The Ritz-Carlton, Buckhead Mrs. J. Lucian Smith Teva Neuroscience Joe Thomas and Melody Cappiali Ms. Sally G. Tomlinson Rusty and Kimmy Umphenour Valery Voyles and Robert Jordan, Jr. Mr. and Mrs. Louis D. Zakas Benefactors Silver Sponsors The Atlanta Falcons Avenue Catering Concepts Ann Cox Foundation, Inc. Biogen Idec BNY Mellon Choate Construction Co. The Coca-Cola Company Genuine Parts Company David and Jennifer Kahn Kay and Steve Lore Parties 2 Die For – Kathy Rainer and Tricky Wolfes Warren P. and Ava F. Sewell Foundation, Inc. Charity and Michael Whitney Mr. and Mrs. C. Scott Akers, Jr. Fred Alias Allergan Dr. and Mrs. David Apple, Jr. Mr. and Mrs. Albert Ashkouti Sandra Anderson Baccus Susanne Dansby Bollman Caldwell Foundation Nancy and Richard Chambers Mr. and Mrs. Peter Dames Vivian and Sam DuBose Fidelity Bank Heather and Eli Flint Jere and Angela Garde Debbie and Stephen Goot Sally and Frank Hanna Mr. and Mrs. Billy Hulse Ann and Michael Kay Kay and Craig MacKenzie Dr. and Mrs. Abner Moore Elizabeth and Chris Morris Linda and Tom Morris Mr. and Mrs. McKee Nunnally Mr. and Mrs. Mark Pirrung Larry and Sandra Prince Dr. and Mrs. William Scaljon Alana and Harold Shepherd Platinum Mrs. Eula Carlos Mr. and Mrs. John A. Carlos Ruth and Talmage Dobbs, Jr. Charitable Foundation Philanthropists Gold Sponsors Elizabeth and Carleton Allen Cyndae Arrendale BNY Mellon Crawford & Company Mr. and Mrs. Jesse Crawford A Friend of Shepherd Center Connie and Mark Hawn Mr. and Mrs. Justin P. Jones Dr. Dorothy Mitchell-Leef and Mr. Forrest Leef Brenda and Dick Smith Linda and Mike Stephens Carol and Jim Thompson Bill and Cindy Voyles June and John Weitnauer Tony and Susan White Mr. and Mrs. Steven F. Whitmire Patrons Gayle and Jimmy Alston Arnall Golden Gregory LLP Ruth A. Bartlett Marla and Tom Bennett Mr. and Mrs. Matthew James Calvert Rives and Kathleen Carter Dr. and Mrs. G. R. Cary Janet and John Costello Jane and Foy Devine Faye and John Donaldson Anna Elmers, M.D., JD Maureen and Tom Escott Mr. and Mrs. C. Michael Evert, Jr. Mr. and Mrs. William Fowler Joann and Tom Gallagher General Building Maintenance, Inc. Andrew Ghertner Shannon and Larry Gillespie Carol L. Goodman Mr. and Mrs. William Hanger Deborah and Bill Harrison N. Cole Harrison III Mr. and Mrs. Tom Jewell JSD Holdings, Inc. Mr. and Mrs. Lawrence P. Klamon India and Paul Klein Tish and Willis Lanier Meurice and Peggy LeFevre Lighthouse Financial Partners John Lin, M.D. Charles and Hannah Machemehl Dr. and Mrs. Randy Martin Susan and Jim McCaffrey Cynthia and Jon McCague Mr. and Mrs. Harmon B. Miller III Ben Noble Mr. and Mrs. James E. Prickett Kay and Ron Quigley Pam and Dan Reeves Holly and Will Rhodes Clyde Rodbell Jack Sawyer and Bill Torres, M.D. Emory Schwall Dana Shepherd Julie Shepherd Sarah and Jamie Shepherd Steve and Eloise Shepherd Tommy Shepherd Mr. and Mrs. W. Clyde Shepherd Valerie and Scott H. Sikes Mr. and Mrs. William Daniel Skinner Dr. and Mrs. Edwin Slappey Karen and John Spiegel Anthony and Lottie Stefanis SunTrust Bank Timothy Tew and Joseph Northington Dr. Judith Tolkan and Dr. Gerald Bilsky Dr. and Mrs. Gary R. Ulicny Rebecca and Den Webb Facing Page, Top: Legendary Late Night guests, left to right, Brianne Clayton, Kristen Snabes and Danielle Dawson enjoy the party. Facing Page, Bottom: Annie Winkler, Trey Weatherly and Miller Jackson pause before heading to the main ballroom to enjoy Simply Irresistible. Winter 2011 3 5 Photos by Thomas Elliot FoundationFeatures Golf Tournament and Tee-Off Party Raise Funds for Shepherd Center Patients October’s Shepherd Center Cup and Tee-Off Party were a great success and raised more than $230,000 for the Shepherd Center Foundation’s Annual Fund. This two-day event is a favorite as it offers a terrific cocktail party and auction, as well as a great tournament for serious and recreational golfers. The Tee-Off Party was hosted by Buckhead residents Amanda and Chip Reames in their lovely home. The Oct. 7 party was on a beautiful and warm fall evening, so guests were able to enjoy the garden as they dined on Avenue Catering’s delicious crab and fried green tomato sliders and pulled pork wraps, while bidding Shepherd Center Cup 2010 Tournament Results 3 6 Spinal Column on exciting live and silent auction items. Highlights of the auction included fine wines, a hunting trip to New Zealand and an original painting of Lady Liberty by Steve Penley. The tournament was held on Oct. 11 at Cherokee Country Club. Golfers enjoyed a delicious grilled lunch. The round was highly competitive, and golfers on the North Course enjoyed the recently renovated greens. Golfers received a Cleveland Diablo hybrid club as a tee gift, and all enjoyed a great round of golf for a great cause. To view more pictures, please visit www.shepherdcentercup.com. — Dean Melcher North Course 1st Place 2nd Place 3rd place South Course Low Gross 126 Morgan Stanley Smith Barney (108 net) REPAY Realtime Electronic Payments (108 net) Tony White (108 net) Low Gross 126 Dave Apple Lee Oliver Steve Wilkes Steve Macciocchi State Bank Hunter Amos Kris Mikkelson Chris Mattie Court Thomas Brian Frank Bert Stein Kelley Day Chuck Miller Shaler Alias Andrew Alias Edward Haluska Joe Wilen Lawson Spence George Lipton Jeff Koontz Don Duckworth w w w. s p i n a l c o l u m n . o r g Shepherd Center Cup 2010 Sponsors Shepherd Center Cup 2010 Tournament Committee Hunter Amos Jay Cohen Kennedy Hicks Duane Morrow Bradley Wilson Dennis McClelland Street Nalley Murray Reavis Kevin Sessions Frank Spears John Stewart Gary Ulicny, Ph.D. Jeremy Wing Daniel Yates Sponsorship Team Auction Captains Shaler Alias Duncan Beard Charles Beard Billijack Bell Jeremy Borak Andrew Bouton William Brakebill Reg Buzzell Jim Caswell John Dryman Brent Dutson David Flint Paxton Griffin Jennifer Hargett Catie Haynes Deanna Joffe Darryl Kaelin, M.D. Krunch Kloberdanz Donald P. Leslie, M.D. Steve Lore Lois Puckett Amy Salloum William Stallworth Winston Wiant Chairman John Rooker Sponsorship Captains Auction Team Hannah Amick Duvall Brumby Michelle Crenshaw Hamilton Dickey Tammie Dunlap Paxton Head John Horgan Philip Mize Juli Owens Shannon Pingley Courtney Platz Jamie Reynolds Dana Shepherd Jennifer Tommasello Facing Page, Clockwise from Top Left: Tournament Chairman John Rooker speaks before the live auction. John lines up his shot on the course. David Apple, M.D., right, follows through on his putt. Ian and Michele Lloyd-Jones, left, and Jayne and John Lipman enjoy the Tee Off Party. 1st Place 2nd Place 3rd Place Baker Audio (96 net) Sir Properties (101 net; 130 gross) Sunbelt Glass & Aluminum, Inc. (101 net) Keith Hicks Jason Hicks Todd Butler Darryl Bak Kevin Connelly Sean Connelly Mark Stewart Tommy Stewart Hubert Suttles Rich Pacella Charlie Bragg Tommy Beman Tee-Off Party Presenting Sponsor Choate Construction Company North Course Sponsor Amerisure Insurance Tee-Off Party Sponsors Biogen Idec Hennessy Automobile Companies Medalist Sponsors United Medical Michael and Charity Whitney Team and Hole Sponsors Atlantic Capital Bank Batchelor & Kimball Beard – Shuford Financial Group REPAY Realtime Electronic Payments Piedmont Healthcare Rooker Co. Schreeder Wheeler & Flint, LLP Plant Improvement Co., Inc. Sewell Printing Service, Inc. State Bank & Trust Turner Broadcasting Company Team Sponsors Clyde and Summer Anderson Foundation ATG Rehab Atlanta Gastroenterology Associates, LLC Bank of America Baker Audio, Inc. Eugenia L. Battle John W. Beiser Bennett Thrasher PC Chick-fil-A, Inc. Davis, Matthews & Quigley, P. C. The Dryman Team and Transwestern E. R. Snell Contractor, Inc. Joe Hamilton Hardline Homes Heery International, Inc. HIMformatics, LLC Ironwood Insurance Services, LLC Mail Sort, Inc. Milner, Inc. Momar Incorporated (2) Morgan Stanley Smith Barney P. C. Management Company Pittman Construction Co. Quantum Rehab Questcor Pharmaceuticals Resourse Real Estate Partners E. R. Snell Contractor, Inc. Sunbelt Glass & Aluminum, Inc. SunTrust Bank, Atlanta SunTrust Bank Troutman Sanders, LLP Turner Broadcasting Company Tony White UBS Private Wealth Management VCC Yates Insurance Agency, Inc. Hole Sponsors Arcapita BB&T Coldroom Systems, Inc. Diversified Investment Advisors Genuine Parts Company (2) JSD Holdings, Inc. LCG Associates, Inc. Cynthia and Jon McCague Monterey Wealth Payscape Advisors Jason A. Schneider, M.D., Resurgens Orthopaedics Smith & Howard, PC Sports Art, Inc. Patrons John Cleveland Cole Family Foundation John and Ann Day George F. Richardson, Inc. Valerie and Scott H. Sikes Winter 2011 3 7 FoundationFeatures Wes Gordon Fashion Show at Saks Fifth Avenue Benefits Shepherd Center host committee Cyndae Arrendale Photo by Ben Rose, The Atlantan chairman Saks Fifth Avenue recently hosted a fashion show featuring designs by Atlanta native Wes Gordon to benefit Shepherd Center. More than 150 ladies (and a few gents) attended the Oct. 27 fashion show and cocktail reception in the Phipps Plaza store. Shepherd Center volunteers Lois Puckett, Cyndae Arrendale and Juli Owens, along with WES GORDON, LLC’s Delis Yanker, put together a terrific event to raise funds and awareness for the Center. The Atlantan Magazine was the official media sponsor of the event, and Morton’s Steakhouse graciously provided tasty hors d’oeuvres for the guests, as they ooo’d and ahh’d over Wes’ spring collection. Named “Best Newcomer in Womenswear” design by Harrods Magazine, Wes studied at the famously competitive Central Saint Martins University of Art and Design in London. He also interned with Oscar de la Renta and Tom Ford before creating his own line. For more information about Wes and his clothes, please visit his Website at www.wesgordon.com. — Dean Melcher Above: A model shows off the crowd’s favorite gown at the fashion show. Cathy Allen Ruth Anthony Shelli Arnold Margaret Bankoff Donna Barwick Heather Flint Diane Gordon Page Harty Kathy Hunsinger Kevin Knaus Caroline Leake Valerie Love Rhonda McClelland Sue McKinley Dorothy Mitchell-Leef, M.D. Juli Owens Ashley Preisinger Lois Puckett Danielle Rollins Diana Sharple Dana Shepherd Jane Fickling Skinner Brenda Smith Claire Walker Shepherd Center Society Gets a Makeover for its Third Year The Shepherd Center Society (SCS) was created to provide 27to 45-year-old supporters a place to socialize and learn more about the hospital while raising money for Shepherd Center patients. It is a bridge of sorts between the Junior Committee and our older groups, Peach Corps and the Shepherd Center Auxiliary. After a successful first two years, SCS assessed its accomplishments and plans for the future. Subsequently, SCS leaders decided to restructure the group’s leadership, broaden membership criteria and reduce the number of large events from four to two – thus, refocusing volunteer energy and reducing spending. SCS will also organize periodic happy hours at local eateries. Membership dues will continue to be $75 per person, which will allow members to attend both large events at no charge. The first major event for SCS will be the Big Game Bash on Sunday, Feb. 6. Football fans will gather to eat, drink and cheer on 3 8 Spinal Column their favorite team, all in the name of helping Shepherd Center. For a small donation, guests can participate in some friendly competition based on the game. All are welcome; non-members will be asked to make a $20 donation to enjoy the festivities. SCS will hold its second event, Summer In The City, in June. Tickets for non-members will be $80, and sponsorships will start at $150. A partnership with Republic National Distributing will make this gathering a marquee event you won’t want to miss. Featuring live music, chefs from local restaurants serving up delicious eats and wine experts offering wine tastings, this party will leave you wanting more. We’ll shake things up with the introduction of a Chinese auction, a cross between a drawing and an auction. For more information on joining SCS or sponsoring one of the events, contact Anne Pearce at [email protected] or 404-350-7302. — Anne Pearce w w w. s p i n a l c o l u m n . o r g Junior Committee Plans 29th Annual Derby Day For the past 28 years, Shepherd Center’s Junior Committee has come together to plan Derby Day – one of the most notable events on Atlanta’s spring calendar. This year is no different with a couple hundred 22- to 35-year-old young professionals meeting monthly to plan and implement this important fundraiser for Shepherd Center. While Junior Committee members spend the fall focused mostly on securing sponsorships and other donations, in the spring, they turn their attention to the logistics of the event while continue to raise funds. With 2011 being Derby Day’s second year at the Georgia International Horse Park in Conyers, the committee is more confident knowing how wonderful the new venue is. The horse park is easy to find, and the beautiful landscape allowed for a picturesque backdrop. The committee has been working on some exciting event upgrades, including an improved and updated Website and a new magazinesized, color program to be distributed to Derby Day guests. The Website is more user-friendly and functional for potential sponsors, Derby Day guests and Junior Committee members. Members can log on and get a recap of the last meeting held or check out Millionaire’s Row – a new page created to highlight breaking news about Derby Day, new developments at Shepherd Center and exciting news about committee members. Sponsors can get information about the various levels of support, download commitment forms or view a list of the current sponsors. Derby Day guests can get information about the event location, view the schedule for Derby Day and purchase tickets (on sale beginning March 7, 2011). The new program for Derby Day will be a full-sized, color publication that will include information about the auction, a list of all sponsors and committee members, and our newest feature – corporate advertisements and personal messages. A new benefit added to the Blue Ribbon Sponsor ($2,500) through the Presenting Sponsor ($20,000) levels is the opportunity to submit their company logo or advertisement, or for individuals, a personal message of thanks, congratulations or encouragement. For sponsors whose gifts are not at a level that includes this benefit, or for those who aren’t interested in becoming a sponsor, but would like to place an advertisement, they can be purchased at a reduced rate depending on the size of the advertisement. The Junior Committee will be accepting new members until early March 2011. For more information about joining Junior Committee or sponsoring Derby Day, log on to www.DerbyDay.com or contact Anne Pearce at [email protected] or 404-350-7302. — Anne Pearce Derby Day Levels of Support sponsorship levels Presenting Sponsor Winner’s Circle Sponsor Triple Crown Sponsor Platinum Sponsor Blue Ribbon Sponsor Gold Cup Sponsor Silver Cup Sponsor $20,000 $15,000 $10,000 $5,000 $2,500 $1,000 $500 patron levels Patron$250 Junior Patron $150 program advertisements without sponsorship Full-Page Advertisement $3,000 Half-Page Advertisement $2,000 One-Third Page Advertisement $1,000 Quarter-Page Advertisement $500 Above: Guests at Derby Day 2010 watch the Kentucky Derby. rotary club of brookhaven “Service Above Self” Invitational Golf Tournament Monday, May 23, 2011 Cherokee Country Club The primary beneficiary will be Shepherd Center’s SHARE Initiative. For sponsorship or player information, call 770-395-7887 or send an email to [email protected]. Winter 2011 3 9 FoundationFeatures Shepherd Center Foundation Advisory Board Gathers for Biannual Meeting Emeriti, national and active members of the Shepherd Center Foundation Advisory Board enjoyed an evening of socializing, networking and learning about new Shepherd Center initiatives at the group’s biannual meeting on Sept. 20. The guest speaker for the evening was Kathleen Brady, whose son was admitted to Shepherd Center’s SHARE Initiative in mid-July. SHARE is a comprehensive brain and spinal cord injury rehabilitation program for U.S. soldiers injured in Iraq and Afghanistan. While Kathleen’s son still has a long road to recovery, his family is relieved to know that he is getting the comprehensive care he needs, she said. In particular, Kathleen commended the program for its continuum of care and services all provided under one roof and under the supervision of the same doctor. That approach is ideal for her son’s recovery, she said. She closed by commenting on the uniqueness of the SHARE Initiative. “While it is not the hospital’s duty to serve this patient population and to fill this gap, I am eternally grateful that Shepherd Center has,” Kathleen said. Also at the meeting, Jim Calise, chairman of the Advisory Board, gave special recognition to three board members who have gone beyond the call of duty. Those members are: Lois Puckett | Lois has been on the board since 2004. Since then, she has spent countless hours volunteering her time through the Shepherd Center Auxiliary, helping the Foundation staff with many special event fundraisers and planning special events for patients. Lois has planned numerous weddings and wedding anniversaries for Shepherd patients. She even organized a wedding proposal involving an airplane flying by Shepherd Center with a “Will you marry me?” banner. Jim thanked Lois for more than 4,384 hours of dedication to Shepherd patients. Bill Saling | Bill began serving on the Advisory Board in April 2010. He and members from Vets Helping Vets (a nonprofit organization he started) recently completed renovations of the Shepherd Place Apartments for SHARE Initiative patients. His volunteers drove from Big Canoe, Ga., every week for more than a year to work on the project. They also raised $50,000 to cover the cost of supplies. Jim thanked Bill for all the hard work that went into making a second home for these patients. 4 0 Spinal Column Robert Hagemeyer | Bob has supported Shepherd Center since 2007. Inspired by his own progress as a spinal cord injury patient at Shepherd Center, Bob established an endowment fund in 2008 to provide funds for outpatient therapy patients who have exhausted their insurance, but have shown consistent progress and would benefit from continued therapy. Through this scholarship, Bob has created a legacy at the hospital that will allow patients to continue to have access to the expert care Shepherd provides. Jim also announced the names of new Shepherd Center Advisory Board members. They are: •L auren Hooks | Director of Sales and Client Services, Invesco; 2009 Co-Chair, Shepherd Center Society •T ycho Howle | Pioneer in the e-business arena; Founder, Harbinger Computer Services; Founder and Chairman, nuBridges • Ryan Hoyt | Senior Leasing Associate, Jackson Oats Shaw Corporate Real Estate; 2009 Co-Chair, Derby Day • Mark Riley | Partner, Urban Realty; Director, The Sartain Lanier Family Foundation, Inc. • Robert Thompson | Managing Partner, Thompson Law, LLC • Scot Ware | Former Patient of Shepherd Center; recently gifted Shepherd Center a rehabilitation center in Franklin, Tenn., (near Nashville) –— Ansley Martin Pecans for Your Valentine Shepherd Center Auxiliary’s Pecans on Peachtree are available for purchase for those special people in your life for Valentine’s Day. Back by popular demand, the Valentine Chocolate Trio has almonds, cashews and pecan halves covered in milk chocolate. The trio is packaged in a red tin with gold Valentine hearts and tied with a large red ribbon. Valentine pecans are available for pickup at the Center while supplies last between Feb. 2 and 14. Order by Feb. 6 for Valentine’s delivery. Visit pecansonpeachtree.org to place your order, or call 404367-1322 or toll free at 1-877-5-PECANS. w w w. s p i n a l c o l u m n . o r g Notes from Scott H.Sikes Shepherd Center Foundation Executive Director Shepherd Center’s Culture of Seeing Beyond Injury Based Upon Five Pillars of Excellence At Shepherd Center, we have been “seeing beyond injury” since 1975. This means that we see the whole patient, not an injury. We see a human being who is ready to get back to a full home, school and/or E work life as soon as possible. One reason we can see beyond a patient’s injury and help our patients to do the same is our unique culture. Some people have jokingly said that we take our volunteer and employee S culture so seriously that we are almost a cult. Our President and Chief Executive Officer, Gary Ulicny, Ph.D., often says, “Culture beats strategy every time.” We believe our culture is the key to our success in producing positive patient outcomes far five pillars of excellence beyond national averages. Shepherd Center is one of those few places where people actually “walk the talk,” not just “talk the talk.” Everything we do at Shepherd Center revolves around a culture based upon our “Five Pillars of Excellence.” Each employee and volunteer is oriented to the five pillars concept when they begin. Employees keep a card listing the five pillars in a plastic sleeve behind their ID badge. The five pillars are people, service, quality, finance and growth. The agenda of every meeting of the senior management team must coincide with the five pillars. In other words, we start those meetings with things that fit under the people category, then the service category and so on. Who are the people in the first of the five pillars – the people pillar? The word people represents the patients, patients’ famiPEOP SERVIC LE AN FIN CE LIT UA Y Q G WT RO H lies, patients’ friends, vendors of equipment and services to the hospital, consulting or visiting doctors, and other medical professionals, donors, volunteers and staff. We often say, “Everyone is the customer.” Service comes next. Service at Shepherd Center means going above and beyond what might simply be required by the person with whom we are dealing at the moment. We ask ourselves: “How can we completely satisfy that person? What is it that we would want if we were in that person’s shoes?” In the order of importance, quality comes next. Quality means doing it right the first time. We know that if we take care of people, service and quality, then finance and growth will take care of themselves. By finance, we mean financial strength necessary to provide superior care for our patients and go far beyond that into the realms of research, patient advocacy and more. Our hospital Board of Directors has a quality committee that works with a full-time staff member, Sue Bowen, to make rounds themselves throughout our campuses to see that we are following the five pillars – not simply the quality pillar. If you would like to learn more about Shepherd Center’s Five Pillars of Excellence or make a gift that will help the finance pillar, please call me at 404-350-7305 or email me at [email protected]. We believe our culture is the key to our success in producing positive patient outcomes far beyond national averages. Winter 2011 4 1 Tributes Honorariums Honorees are listed first in bold print followed by the names of those making gifts in their honor. This list reflects gifts made to Shepherd Center between Aug. 1, 2010 and Sept. 30, 2010. Larry Bowie – Excellent Board Presentation Dr. David F. Apple, Jr. Eula C. Carlos Covenant Foundation, Inc. Mr. and Mrs. Louis D. Zakas Nate Causey Ms. Jane C. Davis Sara and Donnie Chapman Ms. Jane Brown Sam Dowlen’s Recovery Mr. and Mrs. Alex Whatley Sam Draluck’s 85th Birthday Mr. and Mrs. Marvin H. Draluck Mitchell J. Fillhaber – Excellent Board Presentation Dr. David F. Apple, Jr. Rhalda Friedmen’s Recovery Mrs. Sam Arogeti Rosalind Haber’s Recovery Mrs. Sam Arogeti Photo by Alex Seblatnigg Robert H. Antonisse Mr. and Mrs. Julius Ehrlich Dr. David F. Apple, Jr. Ms. Laurie Carter Ms. Donna W. Loupus Cyndae A. Arrendale’s Birthday Mr. and Mrs. Steve A. Williams Cyndae A. Arrendale Mr. and Mrs. Robert G. Watt Sally C. Atwell Ms. Carol R. Catanzaro Deborah Backus – “Clinical Service Excellence Award” Dr. David F. Apple, Jr. Marla J. Bennett Mrs. Robert J. Howard Mr. and Mrs. David D. Wolf Michael Bliss Mr. and Mrs. Earl Repp Scott R. Boerth Mr. John R. Simmerman Caroline Hemingway – Excellent Board Presentation Dr. David F. Apple, Jr. Stephen C. Hester’s Recovery Stone Creek Baptist Church Anne Hall and James Howard Ms. Nancy E. Wellons Betty and Billy Hulse Mr. and Mrs. Nicholas Mulcare Ronald Hurst’s Recovery and Anniversary of his Accident Mr. and Mrs. Ronald Hurst Elizabeth Iski – “Congratulations on becoming an American citizen!” Dr. David F. Apple, Jr. Tony, Marta and Gabe Kirchman Mr. Dan Callahan Elaine and Alan Kolodkin’s 50th Anniversary Mrs. Sam Arogeti Anne Kratochvil’s Recovery Mrs. Judy L. Cashman Judge Phyllis Kravitch’s Birthday Mrs. Bernice K. Mazo Letitia E. “Tish” Lanier Mrs. Sam C. Inman Mr. and Mrs. Roland L’Heureux’s Anniversary Mr. and Mrs. Marc Brunelle Chase Mann’s Recovery Mr. and Mrs. Paul McCain Robert L. “Bobby” Mays Mr. Claiborne Jones Mary Anna McClendon Anonymous Patty and Neal McEwen – Congratulations on the birth of Emma McEwen! Mr. and Mrs. James H. Shepherd III Erica Morchower’s Bat Mitzvah Dr. Amy Schwartz Duane M. Morrow Ms. Lisa Vacante Julie and David Mucher’s Anniversary Mr. and Mrs. Gil C. Mucher Heidi and David Nagel – Congratulations on the birth of Mason Nagel! Mr. and Mrs. James H. Shepherd III Cherry S. Peurifoy Mrs. Jack U. Greenlees Craig L. Powell’s Birthday Mrs. Janet Powell Susanna Rains and Collin Moriarity’s Wedding Reverend Alan Roof Chris Riley’s Recovery Miss Julie Bane John W. Rooker Mrs. Spalding Ashley Jane M. Sanders – Excellent Board Presentation Dr. David F. Apple, Jr. Faye Shemper’s Recovery Mrs. Sam Arogeti Shepherd Center Chaplains and Sunday Service Mrs. Judy L. Cashman Stephen B. Shepherd’s Birthday Ms. Mary B. Bickers Natalie Shinn’s Recovery Gregg Shinn, DVM Wes Varda Marty Mercer, Inc. Mr. Tom O’Dea Mr. and Mrs. James Quaid Graham Welsh The Atlanta Forum It was a perfect fall day for the annual Peach Corps Fall Cookout on Sunday, Oct. 4, in the Shepherd Garden. Seventeen volunteers served hamburgers, hot dogs and ice cream to more than 250 patients and family members. Face painters were on hand for the younger guests, and Birds of Prey offered an exciting show of hawks, vultures and other predatory birds. Here, Buck Rogers, left, and sons Alex, second from left, and Max get up close with one of the birds and his handler. 4 2 Spinal Column w w w. s p i n a l c o l u m n . o r g Deceased friends of Shepherd Center are listed first in bold print followed by the names of those making gifts in their memory. This list reflects gifts made to Shepherd Center between Aug. 1, 2010 and Sept. 30, 2010. Kassandra Butler Mr. and Mrs. Charles P. Gross Jackie Lefler Dr. John R. Castle Mrs. Kay Beard Bobby and Anne Castle Mr. and Mrs. Jerry Horne Neville B. Coltman Mr. and Mrs. Henry Absher BioScience Communications Mr. and Mrs. Philip Box Mr. and Mrs. Joel K. Brooks Mr. Bruce Copilevitz and Ms. Kay Copilevitz Ms. Rachel Jorgensen Ms. Joan F. Lee Mr. and Mrs. Christopher Lewis Dr. Jennifer McKenzie and Mr. Ken McKenzie Ms. Mollie Peddar Mr. and Mrs. Robert G. Roper Ms. Stephanie Sarokin Diane Ison Coursey Mr. Robert H. Hogg III Dr. Robert Carr Denny Dana Coyle Mrs. Sonja Decker Mr. and Mrs. Bill Fenstermacher Mr. and Mrs. David J. Klinke Mr. and Mrs. Raymond G. Rouleau Mr. Charles A. Zabriskie Sam Dinerman Mr. and Mrs. Marvin H. Draluck Marcia H. Duggan Mr. W. R. McCollum, Jr. Mr. and Mrs. J. Harold Shepherd Mr. and Mrs. John E. Singleton Dr. and Mrs. Carter W. Smith, Jr. Emma Jean Dye Mr. and Mrs. Joel K. Isenberg Linwood S. “Woody” Evans Terri and Mike Bamonte Mr. and Mrs. William P. Betchman Ms. Melissa Dutton Mr. and Mrs. Steve Lowder Mr. and Mrs. Henry A. McFaddin Lee A. McLeod Mrs. Sandra Parnell Mr. and Mrs. William C. Thorne Mr. and Mrs. Robert W. Wilder Aunt Eleanor Galanti Mr. and Mrs. Victor L. Cohen Morris R. Galanti Mr. and Mrs. Victor L. Cohen Inez Gordon Mr. and Mrs. James M. Caswell, Jr. Sidney I. Gottler Ms. Betty Schaffer William Chenault Hailey Mr. and Mrs. J. Harold Shepherd Nick Hardage Mrs. Margie Hardage Ms. Mina Harrouff Ivelisse Mendez Jerry M. Hux Mr. and Mrs. Bill Bingham Mr. and Mrs. Benjamin G. Bowen Mr. and Mrs. James A. Breedlove Mr. and Mrs. William Buist Bob and Jay Drennan, Rob and Sarah Drennan and Nicole and Mike Luna Mr. and Mrs. David H. Gambrell Mr. and Mrs. William H. Harrison Mr. and Mrs. Charles H. Howell Ms. Candace Klein Mr. and Mrs. Eric Main Mark Sunderland Mark Sunderland Interiors Ms. Reagan Michaelis Ms. Lauren Murrieta Mr. and Mrs. Abner F. Patton Mrs. John Peurifoy Atlanta Falcons, left to right, Michael Turner, John Parker Wilson and Ovie Mughelli and cheerleaders visit with patient Drake Damesworth, 14, of Gleason, Tenn. Photo by Darlene Johnson Robert Adams Mr. and Mrs. Donald C. Chapman, Jr. Karl M. Anschutz Mrs. Holly C. Drake Laura A. Anschutz Mrs. Holly C. Drake McCary Ballard Mrs. Gloria Dobbs Cowart Mrs. Charles H. Peterson Farrah Johnson Castle Berry Mr. J. Hampton Stevens Claude Blair Mrs. Joan Woodall Joseph E. Bullen Mr. Jonathan E. Bullen Dr. John Bussey Ms. Dana Shepherd Maria Shepherd Photo by Caroline Hemingway Memorials Marcus Community Bridge Program staff lead a weekend therapeutic recreation outing at Brasstown Valley Resort in the north Georgia mountains. Among the activities offered to former patients is wheelchair tennis. Winter 2011 4 3 Tributes Frances F. Leake Mrs. Joan Woodall John W. Lundeen Mr. and Mrs. James M. Caswell, Jr. Mrs. Patricia C. Williams Dr. James H. Milsap, Jr. Mr. and Mrs. J. Harold Shepherd Mrs. Patricia C. Williams George Mims Ms. Dana Shepherd Maria Shepherd Voyde W. Moody Mr. and Mrs. John G. Alston, Sr. Katharine S. Moski Mrs. R. B. Lippincott, Jr. Jean Hunt Newton Mr. Emory A. Schwall Regina Northrop Mrs. Sally C. Atwell Wiley S. Obenshain Mr. and Mrs. John G. Alston, Sr. Mr. and Mrs. James M. Caswell, Jr. Mrs. Patricia C. Williams Kevin Patrick O’Brien Ms. Sally Baer Mr. and Mrs. Gary Baumgartner Mr. and Mrs. Michael Diluigi Mr. and Mrs. James E. Kirby Ms. Julie A. Moore Ms. Carlene A. Tamburo Mr. and Mrs. Thomas J. Thompson Brandon Pentz Mr. and Mrs. James H. Shepherd III Julie B. Poole Mr. and Mrs. Milton Kassel Wilma Redfearn Mrs. Gloria Landreth Sherri Rudd Ms. Anne L. Davis Mr. Edward Flinn Mary Elizabeth Schroder Mr. and Mrs. J. Harold Shepherd William Clyde Shepherd, Jr. Mrs. Barbara S. Malkove Mrs. Charles H. Peterson Ms. Dana Shepherd Maria Shepherd Mr. and Mrs. J. Harold Shepherd Mr. and Mrs. P. Daniel Yates Barbara Sleeper Mrs. R. B. Lippincott, Jr. Candice R. Smith Mrs. Eva Heimann Photo by Gary Meek Photo by Gary Meek Sam C. Inman Mrs. Robert J. Howard Mr. John Barton Marks, Jr. The Shepherd Center Auxiliary Mr. and Mrs. Terrence M. Tracy Mrs. Patricia C. Williams Mrs. Joan Woodall Anne P. Jackson – “A favorite patient” Dr. David F. Apple, Jr. Mavis Oglesby Johnson Dr. and Mrs. Carter W. Smith, Jr. Paula F. Johnson Mrs. R. B. Lippincott, Jr. Teresa “Sissy” Johnson Mr. and Mrs. David M. Lacy Paul Kostuik Mr. and Mrs. A. Gerry Borud Photo by Midge Tracy Mr. and Mrs. J. Harold Shepherd Mr. and Mrs. Dell B. Sikes Mr. Vincent L. Slagel Mrs. Wendy Sprintz Neinken Mr. and Mrs. James D. Thompson Mr. and Mrs. Edward Vaught Ms. Anna N. Watkins Workers make final updates to the renovation of the 22,500 square feet of the second floor of the Shepherd Building. It is expected to reopen in January 2011. The reopening of the second floor will allow contiguous space for the Acquired Brain Injury and Neurospecialty units between the second floors of the Shepherd and MarcusWoodruff buildings. The renovation was made possible by the gifts of generous donors. 4 4 Spinal Column Elvis (a.k.a. Darryl Kaelin, M.D.) rocks at the kickoff party for ShepherdCares 2011 Employee Giving Campaign. w w w. s p i n a l c o l u m n . o r g David H. Vroon Mrs. Patricia C. Williams Lanette W. White Mr. Samuel L. Boroughs Mr. and Mrs. Larry Dodd Mr. and Mrs. Clifford Ewing Mr. and Mrs. David R. Glew Holland Medical Equipment, Inc. Mr. Todd Lane Mrs. Katia S. Moore Mr. and Ms. Jeffrey E. Morrison Mrs. Joann Oswalt Mr. and Mrs. Malcolm W. Quick Ms. Betty A. Shackleford Mr. and Mrs. Mike Shaw Mrs. Cynthia O. Stanford Mr. and Mrs. Alton G. Wiggers Ms. Melinda Williams Mr. Jeremy Woodson Mr. and Mrs. Mark Woodworth Billy D. Williams Mr. and Mrs. Larry Dodd A. D. Willis Mr. and Mrs. James H. Shepherd III Erwin Zaban Mr. and Mrs. Marvin H. Draluck Mr. and Mrs. Charles M. Shaffer, Jr. “The Journey Back to Life Spinal Cord Injury Symposium” in Dalton featured several speakers from Shepherd Center. Left to right are: Cheryl Linden, OT, LPC, Shepherd Center; Kathy Adams, Director of Clinical Services, Accord Services; Dan Miears, Director of Marketing, Accord Services; Cathy Gragg, Director of Nursing, Accord Services; David Apple, M.D., Medical Director Emeritus, Shepherd Center. Photo by Gary Meek Shepherd Center spinal cord injury patient Jose Mendez of Fayetteville, N.C., tries out the new Lokomat® Nanos. The device was designed to make robotic locomotor training more affordable for a broader group of rehabilitation centers. Shepherd Center is the first facility in the United States to get the device and is working with Hocoma on its implementation in clinical practice. Photo Courtesy of Accord Services Jonathan Spanier Ms. Betty Schaffer Jack V. Thomas Mr. and Mrs. Harry McGinn, Jr. Marjorie Thompson Mrs. Meredith M. Durrett Robert Titsworth Mrs. Sarah B. Schloss Ruth Cox Turner Mr. Patrick M. Farley Billy Jack Voyles Ms. Dana Shepherd Maria Shepherd Winter 2011 4 5 Non-Profit Org. U.S. Postage PAID Atlanta, GA Permit No. 1703 Address Service Requested magazine Read the e at: n li n o .org mn spinalcolu Photo by Donn Jones Shepherd Center’s Beyond Therapy® Opens in Tennessee To meet growing consumer interest in innovative rehabilitation therapies, Shepherd Center has expanded Beyond Therapy® to a new satellite location in Franklin, Tenn., just south of Nashville. The facility, formerly the WareCentre, opened in September 2010 and celebrated with an open house event on Oct. 28 (see story on page 27). The 10,000-square-foot facility was donated to Shepherd Center by former patient Scot Ware and his wife Sharon in 2010. It is the first satellite clinic to be launched by Shepherd. Beyond Therapy is an intense, activitybased program that promotes improved health and wellness, as well as neurological recovery, for people with spinal cord injury, brain injury and other neuromuscular disorders. Shepherd Center started Beyond Therapy in Atlanta in 2005. It has served more than 150 people from 20 states and four foreign countries. Beyond Therapy has been so successful that it now has a one-year waiting list. The Beyond Therapy facility in Tennessee, which serves both adult and pediatric patients: • Offers a state-of-the-art program – complete with an extensive suite of high-tech therapeutic equipment – that focuses on neuromuscular recovery, as well as health and wellness across the lifespan; • Promotes continuous rehabilitation benefits that extend beyond the scope of traditional healthcare initiatives; • Extends beyond the range of acute care and predetermined functional goals and continues the rehabilitation agenda by administering aggressive treatment through clinical research and experimental protocols to achieve a higher level of individual functionality. For more information on Beyond Therapy®, visit www.beyond-therapy.org. — Jane M. Sanders Jessie Poucher of Arrington, Tenn., participates in locomotor training on the robotic Lokomat® device at Beyond Therapy in Franklin, Tenn. Therapy manager Scott Hawes oversees his therapy.