2014 Annual Report - Rett Syndrome Research Trust

2014 Annual Report
Making Rett History
Dear Friends,
My precious daughter, Chelsea, turned 18 years old in 2014. It’s a milestone birthday that parents of
special needs children face with mixed emotions. My heart is full with love and pride for the beautiful, emotive, tender yet determined young woman that Chelsea has become. But I am also mourning.
Mourning for a childhood never lived and forever lost.
When Chelsea was a toddler I made her a promise – that I would do everything in my power to heal
her. With little science background, zero drug development knowledge and no fundraising experience
I did not appreciate the enormity of my promise. Ignorance, at times, can be a blessing.
The Rett research landscape in the year Chelsea was diagnosed, 1998, was dismal. The disorder was
practically unknown in medical and scientific circles, there was no known gene and therefore no diagnostic blood test, there were no animal models, and there was little research beyond trying to pinpoint
the genetic cause.
My conviction that treatments and a cure for Rett were possible came from both visceral intuition and
a mother’s love. Today that conviction is based on science.
Love alone cannot cure Rett but love and research will. It’s been 16 years and I am more than ready to
deliver on my promise.
Thank you so much for your support.
Monica Coenraads, Executive Director, RSRT
Rett Syndrome Research Trust
RSRT was launched in 2008 with the purpose
of driving research toward a cure for Rett
Syndrome and related MECP2 disorders. Our
mission is urgent: 15,000 girls and women
in the United States and 350,000 globally
live with the agonizing symptoms of Rett
Syndrome.
RSRT funds more research than any other
Rett organization in the U.S. and abroad. Since
our inception, RSRT has awarded $25 million
to research, more than half of that in the last
two years. An average of ninety-six percent of
every dollar donated to RSRT goes directly to
our research program. Keeping our internal
team lean and fiercely motivated allows us to
focus funds and energy on what matters most:
healing our children.
Board of Trustees
Sir Adrian P. Bird, Ph.D.
Rachael Bloom
Lawrence Mattis
Heidi Paradise
Monica Coenraads
Heidi Epstein
Ingrid Love Harding
Anthony P. Schoener
Marci Valner
As one of the few neurological disorders to
show dramatic symptom reversal in mice,
Rett Syndrome has attracted unprecedented
interest from university and pharmaceutical
scientists. Through innovative research and
constant engagement with scientists, clinicians,
industry, investors and affected families, RSRT
is at the epicenter of this activity.
We do more than just write checks: we are
changing the landscape of Rett research.
We set the research agenda by proactively
identifying and monitoring promising
therapeutic areas, seeking out scientific and
industry partnerships and working closely
with them to advance programs through the
drug development pipeline. We are risk takers
who do not shy away from bold and innovative
projects unlikely to be funded by the NIH or
other more conventional funding agencies.
We believe in a future
without Rett. It’s up to us
to make it happen. We
cannot wait for someone
else to do it for us.
Rett Syndrome
Rett Syndrome is a serious lifelong neurological
disorder that afflicts girls almost exclusively. It
is caused by random mutations in a gene called
MECP2 and affects approximately 350,000
girls and women globally.
Most girls with Rett develop normally for the
first twelve to eighteen months of life. Then a
regression occurs, over a period that spans days
to months, in which previously acquired skills
are lost. Many children with Rett are unable
to speak, walk or use their hands. Breathing
problems, feeding tubes, seizures, anxiety,
gastrointestinal and orthopedic problems are
common.
Rett Syndrome stands apart from most other
neurological disorders due to the dramatic
reversibility of symptoms in mouse models. It
is, in theory, a curable condition. But much
scientific work lies ahead to translate a reversal
in mice to a reversal in girls and women. RSRT’s
conviction that this can be accomplished guides
our every decision and drives us to accelerate
the research relentlessly.
Despite the debilitating
nature of the disorder our
girls are so much more
than a laundry list of
symptoms. Their beauty
and their strength inspire
and motivate us.
2014 Fundraising Events
RSRT could not do what it does without funds raised at events that are
spearheaded by families affected by Rett Syndrome. These dedicated
families and their friends are making a difference to the research and
to the future for girls and women with Rett. We are tremendously
grateful. These are highlights from 2014.
Our Alliances
Financials:
Statements of Financial Position
December 31, 2014 and 2013
ASSETS
Current Assets
Cash and Cash Equivalents
Promises To Give
Investments
Total Current Assets
Property and equipment, net of
accumulated depreciation of $1,086
LIABILITIES AND NET ASSETS
2014
2013
$5,002,498
$4,694,376
$716,229
$398,788
20
20
$5,718,747
$5,093,184
$2,171
-
Other Assets
Promises To Give
$529,200
$680,880
Total Other Assets
$529,200
$680,880
Current Liabilities
2014
2013
$2,500
$6,684
$5,537,722
$3,719,507
$15,548
$15,554
$5,555,770
$3,741,745
Grants Payable
$3,888,854
$4,446,697
Total Liabilities
$9,444,624
$8,188,442
($3,196,677)
($2,414,378)
$2,171
-
Total Net Assets (Deficit)
($3,194,506)
($2,414,378)
Total Liabilities and Net Assets
$6,250,118
$5,774,064
Accounts Payable
Grants Payable
Accrued Expenses
Total Current Liabilities
Other Liabilities
Net Assets
Total Assets
$6,250,118
$5,774,064
For Mission Purposes
Property and Equipment
Statement of Activities
for the years ended December 31, 2014 and 2013
Public Support and Revenues
2014
2013
$5,629,478
$5,498,185
$140,406
$ 147,251
$8,990
$10,500
$14,729
$15,004
1
411
$5,793,604
$ 5,671,351
$6,121,491
$7,389,001
$93,634
$65,644
$358,607
$258,440
Total Expenses
$6,573,732
$7,713,085
Decrease in Net Assets From Operations
($780,128)
($2,041,734)
Net Assets (Deficit) - Beginning of Year
($2,414,378)
($372,644)
Net Assets (Deficit) - End of Year
($3,194,506)
($2,414,378)
Contributions
The Eva Fini Fund
Donated Services and Rent
Interest Income
Realized Gain from Sales of Donated Securities
Total Support and Revenue
Expenses
Program services
Supporting services:
Management and General
Fundraising
Research Awards and Commitments
for the years ended December 31, 2014 and 2013
Commitment at
December 31, 2013
Hospital for Sick Kids - Monica Justice
Additional
Commitments
Payments Against
Commitments
Commitment at
December 31, 2014
$301,815
$715,680
(301,815)
$715,680
$74,616
-
(74,616)
-
-
$290,000
(72,500)
$217,500
$385,000
-
(220,000)
$165,000
$11,485
-
(11,485)
-
$1,176,131
-
(707,432)
$468,699
$150,000
$465,000
(125,000)
$490,000
$50,000
-
(50,000)
-
UMASS Medical School - Michael Green
$562,500
-
(250,000)
$312,500
Sheba Medical Center - Bruria Ben Zeev
$98,982
-
(98,982)
-
$126,741
-
(126,741)
-
-
$403,000
$3,417,575
$250,000
(1,379,345)
$2,288,230
$1,535,942
$67,401
(460,192)
$1,143,151
Baylor College of Medicine - Huda Zoghbi
Fred Hutchinson Cancer Research - Antonio Bedalov
University of Virginia - Jonathan Kipnis
MIT - Mark Bear
UNC Chapel Hill - Benjamin Philpot
Harvard University/MGH - Jeannie Lee
Case Western - David Katz
Harvard University - Michela Fagiolini
Children’s Hospital at Montefiore - Aleksandra Djukic
MECP2 Consortium
$403,000
Harvard
University of Edinburgh
OHSU
Gene Therapy Consortium
UNC - Chapel Hill
Nationwide Children’s Hospital
University of Glasgow
OHSU
Research Awards and Commitments Cont.
Commitment at
December 31, 2013
Additional
Commitments
Payments Against
Commitments
Commitment at
December 31, 2014
Baylor College of Medicine - Huda Zoghbi -Duplication
$82,684
-
(82,684)
-
-
$230,000
(28,750)
$201,250
$319,224
$414,065
(89,590)
643,699
Children’s Hospital at Montefiore - Antonio Bedalov
-
$82,500
(82,500)
-
UCSD - Jeff Neul
-
$ 314,456
(159,806)
154,650
LRSF - Sung Yon Kim
-
$91,500
-
91,500
UTSW - Stephen Turley
-
$20,000
(20,000)
-
Kennedy Krieger Institute - Jay Shapiro
-
$4,000
(4,000)
-
California Institute of Technology - Ali Khoshnan
-
$200,000
(50,000)
$150,000
Trinity College - Daniela Tropea
-
$13,000
-
$13,000
Washington University - Daniel Ory
-
$3,000
-
$3,000
Lurie Children’s Hospital - Debra Weese Mayer/Michael Carrol
-
$157,300
(19,662)
$137,638
Stonybrook University - Nurit Ballas
-
$20,000
(20,000)
-
UNC - Chapel Hill - Terry Magnuson
-
$200,000
-
$200,000
Case Western - David Katz
-
$271,700
-
$271,700
Case Western/Cleveland Clinic - David Katz/Daniel Sessler
-
$1,295,131
-
$1,295,131
University of Alabama/Birmingham - Lucas Pozzo Miller
-
$110,000
-
$110,000
Aleksandra Djukic - Copaxone Supplement
-
$47,000
(47,000)
-
Aleksandra Djukic - Copaxone additional
-
$57,661
(19,866)
$37,795
Reversal
ASO
Screen
Children’s Hospital at Montefiore -
Research Awards and Commitments Cont.
Commitment at
December 31, 2013
Additional
Commitments
Payments Against
Commitments
Commitment at
December 31, 2014
DaimiR
-
$6,768
(6,768)
-
Neurolixis
-
$54,945
(54,945)
-
Recursion
-
$25,000
(25,000)
-
$8,292,695
$5,809,107
($4,588,679)
$9,513,123
The stakes are high
Our efforts aim higher
Our Deepest Thanks to All Our Supporters
$1,000,000 and Up
Reverse Rett (UK)
$250,000 to $999,999
Girl Power 2 Cure
Rett Syndrome Research & Treatment
Foundation (Israel)
Kathy & Tony Schoener
$100,000 to $249,999
Anonymous
The Charles T. Bauer Foundation
$50,000 to $99,999
Marjorie & Walter Buckley, Jr.
Holly & Thomas Gores
Jennifer & Bud Gruenberg
Michelle & Sonny Kalsi
Kate Foundation for Rett Syndrome
Research
Sarah & Jon Vanica
Windsor Charity Polo Cup through the
Indian River Community Foundation
$25,000 to $49,999
The Anastasi Fund
Jane Barsumian/Mary Lyons Trust
Debbie & Jimmy Lustig, CLFS
Equities LLP
Julie & Ken Moelis
Rett Syndrom Deutschland (Germany)
TFWA
Ellen & Marc Tesler
Van Wright Foundation
The Winston Foundation, Inc.
Caryn & Allan Zelinger
Helen & Bernard Zelinger
$10,000 to $24,999
Roberta & Alfred Brand
Courtney & Nicholas Burgin, The Burgin
Family Fund
Circle of Confusion
Dominique & Kevin Coloton, The
Coloton Foundation
Mary & John Conlin
Pat Covelli Foundation
DeSales Media Group
Evolution Capital
Heidi & Jonathan Epstein
Trudy & Bruce Fagel
Samantha & Jonathan Firestone,
Firestone Family Fund
GE Foundation
Dell & Oscar Gerster
Jami Gertz & Antony Ressler,
Ressler-Gertz Family Foundation
IPA Foundation
JFK Family Central Fund
Sonia & Paul T. Jones,
PTJ Operations, LLC
Frances Kamien & Lawrence Mattis
Susan & Francis Knott
The Paul & Karen Levy Family
Foundation
N.C.D.C. of New York
New Jersey Rett Syndrome Association
Sandy & Al Parvin
The Patella Charitable Fund
Rett Syndrome Association of
Massachusetts, Inc.
Sharon & Nelson Rising
Bonnie & Bruce Sawyer
Senior Living Options, Inc.
Beth & David Shaw
Pamela Shriver
Stichting Rett Syndroom (Netherlands)
Marci & Rudy Valner
Joanne & William Vuylsteke
Anthony Westreich
$5,000 to $9,999
Ernest Abate, The Herbert & Nell Singer
Foundation, Inc.
Anonymous
Debbie & Mark Attanasio
Amy & David Baker
Brenda Bates
Roxanne Batterman
Robert Beer, Mabel B. Fischer Grant
Foundation
Dahlia & Art Bilger, The Bilger
Foundation
Kyrsten & David Bourdon
Stephanie & Joaquin Bouzas
Anne & Peter Browne
Andrea & Ron Bryman
Laura & Shawn Byron
Joan & Charles Carlson
Beate & Christopher Chee
Component Assembly Systems, Inc.
NY Division
Crossfit Adrenaline
Michael Deutsch, Singer Deutsch LLP
Alice & Ken Evans
Judy & Carl Ferenbach
Barbara & David Firestone
Allison & Kevin Foley
Joyce & Harold Frank
Fanny & Gudelio Friedstadt
Andrea & Mark Gabbay
Ann & Jim Gianopulos
Hope Goldstein
Peter Grossman, Lichter, Grossman,
Nichols & Adler, Inc.
Julie & Richard Harrah
Hambletonian Marathon, Inc.
Shîla Hazan, The Morris A. Hazan
Family Foundation
Ann & Peter Herbst, The Malcolm Gibbs
Foundation
The Mary Lincoln Johnson
Charitable Foundation
Gretchen & Jonathan Klein
Owen & Erin Knott
Jessica & William Koenigsberg
Minas Kourouglos
Frank Lee, Elias, Genevieve, Georgina
ATOL Charitable Trust
Susan & Peter Lee
Laurie McCarthy & Michael Meyer
William McMorrow
Milken Family Foundation
Karen & Mathew Nieman
Liza & Daniel Oneglia
Calcasieu Parish, 4-H Foundation
Amy & Tony Pasquariello
Julianne Phillips & Marc Gurvitz
Marcia & William Randol
Regal USA Construction Inc.
Anita Rogers
Margaret & Eugene Rogers
Leslie Romenesko
Karen Richards Sachs & David A. Sachs
Sasco Foundation
Stephanie Siemiller
Iris & Michael Smith
Jean & Charles Smith, The Smith
Family Foundation
Paulina & Carlos Smith
Beth & Sean Stevens
Nancy & Arn Tellem, Tanner Mainstain
Blatt & Glynn
Jenny & A.J. Tesler
Kathleen & Charles Toppino
Rhonda & Mark Wapnick
$2,000 to $4,999
Jeanne & Kurt Aarsand
Barbara & Ernest Adelman
Shannon & Stephen Albanese
Pamela Albert, MECP2 Duplication
X-Factor Fund
Margaret Allen & Philip Perkins
Elin & Peter Anderson
AutoNation Toyota Scion Tempe
Denise & Bob Barta
Robert Barth
Rajeev Batra
Robert Bauer, The Robert J. Bauer
Family Foundation
Frederic Belaigues
Bella Vita Salon Day Spa
Phil Belling
David Berg, Redirect Health
Kristine & Joseph Betro
Joan & Harvey Bines
Paul Binsfeld, Company Nurse, LLC
Adele & Leonard Block Foundation, Inc.
Jill & Michael Bluhm
Lucille & Jack Bonventre, Block 11865
Realty Corp.
Donna & Stephen Bowers
Dominique Bravo & Eric Sloan
Nina & Scott Brody, Scott Properties
Group Inc.
Lindsay Burns
Robin Carlson, Pets for Retts Trust
Renee Cermak
Shirley Cho & Edwin Collins
Carole Clarke & Walter Englander
Rachel Clarke & Tim Freeman
Monica & Pieter Coenraads
Vanessa & Bradford Cohen, Venable LLP
Victor Constantiner
Amanda & Christopher Cope
Maggie Cordish
Cornerstone Group
Dello Russo Laser Vision
Susan & James DePuy
William Desser
Thank You
$2,000 to $4,999 cont.
Elizabeth & Jonathan Easton
Caryn & Craig Effron
Robert Evans, R.S. Evans
Foundation, Inc.
Rory Evans & Jeremy Savian
Gayle & Marc Ezralow
Suzette & Thomas Fasano
Lelani & Bradley Fauvre
Giovanni Favilli, Italian Consul
General, Dubai
Loretta & Albert Fini, Sr.
Roger S. Firestone Foundation
Marjorie & Michael Francis,
Planned Security Services, Inc.
Mary & Peter Freund
Beth & Joshua Friedman
Mariejose Geradts
Thomas Giannettivt
Vladimir Golovanov
Greenspring Associates
Stephanie & Mark Grinis
Caroline & Michael Hackman,
Hackman Capital
Harbor Capital Advisors, Inc.
Annmarie & William Harlor
Lisa & David Hernand
Bunny & Jack Hoffinger
Cynthia & Kevin Ilardi
Independence Lions Club
Investment Center, Inc.
Brenna & Mike Johnson
Susan Johnson
Sally & Carl Jones, Desert Trails
Development, Inc.
The David & Meredith Kaplan
Foundation
Jeffrey Karsh, Tryperion Partners
Katz Family Foundation Fund
Suzanne & Ric Kayne, Kayne Foundation
Kathleen & John Kelsh
Kristine & John Kelsh
Lisa & Brian Klingenberg
Steven Layton
Nancy & John Leahy
Harriet & Jeffrey Legum, Legum
Foundation, Inc.
Matthew Loeb, IATSE
Matthew Loeb, IATSE - Richard F. Walsh/
Alfred W. DiTolla/Harold P. Spivak
Foundation
Deborah Long
Lowe Enterprises Investment
Management, LLC
Elizabeth & Michael Maher
Misha Malyshev
Roy March
Tammy Marsico
Melanie McMinn, McMinn Foundation
John Meaux
Richard Mendelson
Anne & John Mitchell
Kelii Miyata
Angela Moore
Samantha Morris
Julie & Scott Morrison, Morrison &
Associates CPAS, PLLC
Moss Foundation
Sabrina & Garret Musson
Michael Nagin, Wells Fargo
New Hampton Fire Co.
Mali & David Newman
Barbara Voss & Charles Noell
Danielle & Laurence Oster
Jacqueline & Joshua Pack
Colleen & Joseph Palmer
Perry Capital, LLC
Colleen & Jeffrey Peterson
Deepak Ramanathan
Jesse & Jeremy Randol
Riah Salon, Inc.
J. Michael Riley, M&T Charitable
Foundation
Shelby Roos
Laurie & Mark Rosenthal
Beth & John Rothschild
Marsha & Paul Rothschild
Rachel & Jason Rothschild
Helen & Fintan Ryan, Fiampack Corp.
Christine Salerno
San Bernardino County Fire Fighters
Local 935
Julie & Douglas Sawyer III
Daleth Rodrigues Scaramuzzi
Joy & Barry Schwartz
Mary Gray & Brian Shanly
Kevin Shannon
Annette & Leonard Shapiro
Michael Sheha
Erin & Nick Silvers
Innes & Dmitri Smolansky
Sheryl & Jonathan Sokoloff
David Sturner, Murray Hill Properties
The T.F. Trust
Gregory Thomas
Ada & John Tiralla
Kathy & Charlie Toppino
Graziella & Egisto Turri
Claire & D. Michael Van Konynenburg
Artana Vilar
Village School
Britten & Todd Wadler
Patricia Watson
Dawn & Eric Weinstein
Mary Ann Weisberg & Bryce Perry
Ophelia & Adam Weiss
Elizabeth Whitaker
Dominique & David Wirtschafter
White & Case LLP
Cindy & Andrew Yoon
Laura & Anthony Zaborski
$1,000 to $1,999
4-H Foundation
Cheryl & Edward Adler
David Alagem
Garland & James Alban
Linda & Donald Albanese
Debbi & Lee Alpert
Marsha Alpert
Eileen & Ken Ambach
Andre Ameer, EIC Associates Inc.
Anchor QEA
Marcia Anderson
Susan & Kevin Armistead, Armistead
Mechanical, Inc.
Michele & Peter Aronson
Stacey Averkieff
Bacon Wilson P.C.
Lisa & Scott Bancroft, SPB Builders LLC
Nancy & Charles Banov
Kalli & Justin Bell
Francine & Joel Berger
Susan & Jon Berger
Michael Bergman
Frances & Steven Berman
Jill & Josh Berman
Rebeca & Roberto Besquin, D’Style, Inc.
Leslie Bider
Denise & Greg Bishop
Blustein, Shapiro, Rich & Barone, LLP
Vicki & Tom Bourdon
Selina Brian Boxer-Wachler
Thomas Bozzuto, Bozzuto Family
Charitable Fund
Rhonda Brand
Steve Briggs
Cindy & Bob Broder, The Broder
Foundation
Jill & Robert Bronstein
Brooklyn Technical High School
Mary Beth & Cameron Broumand
Jacques Bryan
Bryan Cave LLP
Sarah & Jeffrey Canavan
Griselda & Arturo Casillas
Casino Arizona
Anthony Casola, Jantile Inc.
Casey & David Caspe
Dermod Cavanaugh
Mary & Jeffery Cheney
Joan Chess
Patti & Richard Cohn
Dolores & Hugo Cola, Top Notch
Drywall Corp.
Kelley & Alexander Colarusso
Joanne & John Connor
Michaela & Leon Constantiner
Patricia Cowan
Dana Cox
Nancy & John Davies
Barbara & Patrick Deming
Matt Dent, DF Dent and Company, Inc.
Greg DePuy, Royal Pools
Construction LLC
Edmund DeSantis
Lena & Paul DeSantis
Jill Deutsch
Jane Donaldson
Nancy & Donald Dowling
Diane & Roger Duhl
Nora Dweck-McMullen
Cindy & Andrew Dwyer
Lindsay & Leroy Eakin
Eide Bailly LLP
Evelyn & Gerald Epstein
Cindy & Steve Farber
Nick Fawaz
Linda & William Feldhorn
Melinda & David Fields
FilmNation Entertainment
Piper & Brian Finnell
FKS Wealth Management
Judy & Robert Flesh
Thank You
$1,000 to $1,999 cont.
Marci & Gregory Foster
Brenda & Joseph Fraas
Carin & Glenn Freeman
Dorothy & James Freeman
Maria Frei
April & David Freitag
Anita & Harvey Friedman, S & A
Agate Foundation
Jeff Friedman, Mesa West Real Estate,
LLC
Gisela & Jeff Friedman
Aimee & Mark Fulchino
Agata Gajewski-Sathi
Jennifer & Gerard Galarneau
Jane & Mark Gavens
Barbara & Mark Gerson
Dawn & Vincent Gesualdo
Kelly & Mark Gilbert
Amy Goldsmith
Kelly & Seth Goodman
Jonathan Gordon
Jan Goren, Goren, Marcus,
Masino & Marsh
Goshen Central Middle School
Katherine Gould-Martin, Bard College
Deborah & Marc Graboff
Henry Grandizio, Grandizio, Wilkins,
Little & Matthews, LLP
Nora & Michael Gray
Greystone Funding Corporation
Wendy & Steven Gronich, Tollegno USA
Janis & Keith Gurnick
Stefanie & Manny Gutierrez
Olga Gutman
Suzanne & David Hall
Nicole & Jeremy Hallsey
Ellen & Robert Hartley
Steve Haston
Jim Hatton, Hatton Consulting, Inc.
Debra & Edward Hebert
Coralee & Art Henkel
Ken Hertz, Hertz, Lichtenstein &
Young, LLP
Megan & James Higgins
Heather Hoerle & Richard Hilpert
Margaret & Michael Hoffberger
Leslie & Mark Hoffman
Gentry Hoit, Park Madison Partners
Karen & William Howells
Lisa & Matt Humiston
Katarina & Bo Hyde, J.R. Hyde III
Family Foundation
Marc Iannuzzi
Hilary Isacke
Miles Isacke
Chantel & Gary Jager
Amy Avila & Anthony Jaswinski, Grant,
Tani, Barash & Altman
Dee Dee & Andrew Jhawar
Barbara Johnson
Nancy Johnson
Elizabeth & Dennis Jones
Sydney & Peter Julien
Melanie & Josh Kaplan
William Kearns
Amy Kedzior & Derrick Wyatt
Oliver Keller
John Kelly
Erin & Daniel Kelsh
Anne & Bob Kinsley, The Kinsley
Foundation
Elyse & Barry Klayman
Michael Koss Charitable Foundation
John Kourouglos, Capital West
Insurance
Susan Krevoy & Leo Spiwak
Kristin & Steve Krzywicki
Robin Kurtzman
Susan & Rick Kurtzman, Kurtzman
Family Foundation
Cindra & Alan Ladd
Ronni & Steve Lamfrom
Margaret LaSala
Andrew Lauren
Arlene & Marvin Lazar
Noel & Rena Lee
Abbe Lane & Perry Leff
Alicia & Bob Levitt
Ellen & Harry Levitt
Jody Ann & Bernard Lively
Diana Loffredo & Ronald Nasser
Longo Toyota-Scion-Lexus
Susan Lord
Anna & Robin Luce
John Luetkemeyer, Continental
Realty Corporation
Nicola & Michael Mahoney
Carolyn Malcolm
Susan & Marcus Mamolen, Giglinx
Global, Inc.
Joan & Sidney Marantz
Augusta & Piero Marini
Mark’s Garden
Ann & Arthur Mazirow
Renee & Jason McGinnis
John McKanas
Dan McTaggart
Cathy & Joe Menerey
Mercurio-Norton-Tarolli-Marshall
Land Surveying - Eng., P.C.
Eileen Mildenberger
Michael Mildenberger
Sarah & Jeremy Milken
Colleen & Damon Mintzer
Chandra & Keith Mitnik
Lynn & Gary Miyata
Carol Mizel, Flora and Morris
Mizel Foundation II
Jeff & Charlotte Moore
Samantha & Stuart Moore
Christine & Jeffrey Morse
Tom Motherway
Brennan Mulcahy,
American Solar Direct
The Thomas F. and Clementine L.
Mullan Foundation, Inc.
Raul Blazquez Munoz
Nina & Henry Murphy
Lisa Myers
Kathryn & Sam Naficy
Kathleen & Richard Nefzger, R&K
Enterprise Solutions, Inc.
Diane Netzel, Netzel Financial
Mieke & Spencer Neumann
Jerome Newman, Allied Building
Products Corp.
Uyen Nguyen
Lorene & Christopher Niehaus
Gabriella & Adam Nourafchan
Myra & Saeed Nourmand,
Nourmand Associates
Suzanne & Brian O’Callaghan
Stacy & Sean O’Conor
Erika & Tom Oelkers
Off Madison Ave
Rosemary Onorato
Orange County Trust Company
I-Shyh & Paul Ortiz
Ryan A. Pacella Memorial Fund
Enrico Paglia, Paglia Electrical Corp.
Roxanne & Dean Palin, Palin Enterprises
Cynthia & Thomas Pearson
Christine Peterson
Pharmachem Laboratories, Inc.
James Piasecki
Donna & Ken Pilgrim
Alissa & Giovanni Pirraglia
Maureen Plain, Ages & Stages LLP
Julie & Marc Platt
Joe Polish, Genius Network
Shereen & Michael Pollak
Kim & Vincent Primiano
Olga & Dmitry Pugachevsky
Pamela & Jeff Rabin
Robin & Jeff Raich
Jane & Ben Randol
Anissa & Charles Reagor
Red Rooster Music
Alison & Richard Ressler
Ricki Rest
George S. Rich Family Foundation Inc.
Joelle & Jack Rimokh, Signal
Products, Inc.
Boris Rjavinski
Barbara & James Robins
David Rolf, Tag Messenger, Inc.
Ellen Rose
Michael Rosenberg
Nanci & John Rosenfeld, A Professional
Corporation
Peggy & Raymond Rosenthal
Lynne & David Rossman
Loni & Jeff Rush, Rush
Family Foundation
Susan Rutledge, M.H. Uyekawa, Inc.
Sal e Pepe Contemporary Italian Bistro
San Bernardino County
Firefighters Association
The Richard and Ellen Sandler Family
Foundation
Jill & Derrick Sandwick, High Desert
Underground, Inc.
Satin Fine Foods, Inc.
Shelley & Rick Satkin, RMS
Jennifer & Jonathan Schechter
David Schnaid, David Schnaid
Accounting Corp.
Lauren Schwartz
Marsha & Michael Scimo
Stacie & David Shaheen
Stacy & Jesse Sharf
Joseph Sharpe
Nora Shea
Helene & Alvin Shipon
Thank You
$1,000 to $1,999 cont.
Michelle & Robert Shipp
Yana Shor
Irina & Boris Shrayer Fund
Robyn & Marc Sidoti
Monica Silberstein & Sandor Valner
Nick Simon, Jackson National Life
Insurance Company
Sara & Andy Singer
Desiree & Dominick Siracusa
Jonathan Sirulnick
Rima Smolyanskaya & Ilya Gelman
Margaret Snow
Steven Starker, The Starker Family
Foundation
Laura Stees & C. Taylor Pickett
Porsha Stepney, Dun & Bradstreet
Gerry Stringfellow, Law Offices of
Ripley & Associates APC
Linda May & Jack Suzar
Elizabeth Sherman Swing
Mara Connolly & Pete Taft, The Taft
and Partners Charitable Fund of
the Princeton Area Community
Foundation
Xuesong Tan
Gary Tedesco, Kleven Construction
Ilyse & Steven Teller
Daphne Thomas
David Thomas
Peter Thomas
Liz & Tim Thorpe, HCT Packaging, Inc.
Marcia & James Trainor
Mark Trocino, Crystal Run
Healthcare LLP
Michael Tully, Tully Family Foundation
Marybeth & Gregory Tyrrell
USA Entertainment News, Inc.
Stephanie & Leon Vahn
Stacy & Alberto Valner
Charles Verdery
Michael Vernieri
Igor Vidrevich
Barbara & Miguel Vilar
Maria & Robert Vitro
W.W. Lewis Middle School
Waterford High School
Sharon & Michael Weiner
Meghan & Daniel Whitehurst
Vanessa & John Wilcox
Jahmal Williams
Martha Berkman Winfield
Thank You
Rett Syndrome Research Trust | 67 Under Cliff Road • Trumbull, CT 06611 • USA | www.reverserett.org | (203) 445-0041