slide set

The European MSM Internet Sex (EMIS) survey
Being part of something huge !
EMIS methods and lessons learned
Peter Weatherburn
Rigmor Berg
Michele Breveglieri
Laia Ferrer
Percy Fernández-Davila
Cinta Folch
Martina Furegato
Ford Hickson
Harm J. Hospers
Ulrich Marcus
David Reid
Todd Sekuler
Axel J. Schmidt
The EMIS network
EMIS – a feat of planning
1. Fundraising and partnership building.
2. Questionnaire design, piloting and
agreeing final content.
3. Translation and online preparation.
4. Survey promotion and completion.
5. Data cleaning, analysis, report writing
and knowledge transfer activities.
Questionnaire development
• Five drafts of the questionnaire, with
three cycles of consultation.
• Initial piloting occurred in English on
paper via 21 partners.
• The survey was transferred online (in
English) using www.demographix.com
• The survey was piloted again online, with
cognitive interviews with participants.
Organising themes
1. The level and distribution of sexual HIV / STI
exposure and transmission facilitators
(“behaviours”).
2. The level and distribution of unmet HIV
prevention need (“needs”).
3. The population coverage and acceptability of
interventions (“intervention performance”).
4. The information needed to compare samples
and target interventions (“demographics”).
TRANSLATION AND ONLINE PREPARATION
• The EMIS questionnaire was available in 25
languages simultaneously.
• Translation was an interactive process
involving native-speaking stakeholders from
the field and two native-speaker translators.
• EMIS partners in each country were asked to
review the final survey and to sign off on their
main language version.
Online preparation
• All 25 surveys ran separately and
simultaneously on www.demographix.com
• All surveys had their own URL or could be
accessed via a “language selection” page at
www.emis-survey.eu
• All partners could log-in to view and analyse
the data in real-time, as it was collected.
• A consolidated version of the 25 surveys was
created in real-time, to enable us to monitor
recruitment across the whole of EMIS.
EMIS visual identity
Trans-national promotion
The five sites were
1. GayRomeo
2. Manhunt/Manhunt Cares
3. Gaydar
4. Qguys
5. Qruiser
Recon, Barebackcity and the International Lesbian, Gay,
Bisexual and Intersex Association (ILGA)
Trans-national promotion: GayRomeo
Trans-national promotion
The other main sites were
1.
2.
3.
4.
Manhunt/Manhunt Cares
Gaydar
Qguys
Qruiser
Other trans-national promotion
• Facebook
• Google AdWords
National recruitment to EMIS
• 227 national websites promoted EMIS
• <10% (n=15) of which required any payment.
• Overall 237 websites promoted EMIS.
• 10% (n=24) required payment .
• The total promotional budget for EMIS –
including all offline and online promotion and
delivery costs – was 50,000 euros.
Final pan-European sample
184,469
182,039
181,495
cases at download
lived in Europe
met the qualifying criterion
.
174,209 MSM resident in the 38
countries with more than 100 eligible recruits,
and excluding cases with two or more data
discrepancies.
Response: all qualifying respondents
Countries in brackets had no active partner at the time of recruitment.
Country-specific absolute response
100,000
90,000
80,000
55,992
70,000
60,000
50,000
5,391
5,263
5,172
4,205
4,140
3,917
3,269
3,231
2,873
2,492
2,466
2,303
2,159
2,133
2,072
2,010
1,789
1,787
1,155
1,084
1,036
734
618
612
605
379
290
287
163
126
123
0
123
10,000
536
18,393
13,730
20,000
11,641
30,000
16,689
40,000
MD(MT)MK (BA)(CY) (LU) BY (HR) SK EE LT LV SI BG RS UA DK TR FI HU NO IE RO CZ PL GR SE NL BE AT CH RU PT FR ES IT UK DE
Response: all qualifying respondents
Denominator data: Eurostat 2009.
Countries in brackets had no active partner at the time of recruitment.
Country-specific relative response per 10,000 inhabitants
10.0
9.0
5.9
7.0
5.1
5.1
5.0
3.9
3.9
3.5
3.3
3.2
3.0
3.0
3.0
2.9
2.8
2.4
2.1
1.8
1.8
1.5
1.4
1.1
1.1
0.8
0.6
0.4
0.4
0.4
0.4
0.3
0.3
2.0
1.2
3.0
2.4
4.0
3.2
4.5
5.0
4.6
5.0
6.0
1.0
6.8
6.7
8.0
0.0
TR MD (BA) RU UA BY MK PL SK RO (HR) BG RS FR LT HU NL CZ IT GR UK ES (MT) DK LV (CY) SE BE FI NO EE AT SI PT IE (LU) CH DE
Lessons learned
• EMIS mobilised a large and diverse network of
people and organisations who cared passionately
about MSM.
• The questionnaire was long but internally coherent
and very clear in its instructions.
• The questionnaire was hosted on a purpose built
internet survey platform that was infinitely
modifiable.
• Co-operation with multi-language, supra-national gay
dating websites was strong and collegiate and this
was crucial for the involvement of the target group.
EMIS was funded by a grant of the European
Commission under the EU Health Programme
2008-2013.
Further financial support was received from CEEISCat (Spain),
Department of Health (England), Maastricht University (The
Netherlands), Regione del Veneto (Italy), and Robert Koch Institute
(Germany).
Further funding for Ukraine & Moldova: German Ministry of Health
Further funding for Finland: Finnish Ministry of Health
Further funding for Norway: Norwegian Institute of Public Health
Further funding for Sweden: Swedish Board of Health and Welfare
Further funding for Germany: Bundeszentrale für gesundheitliche
Aufklärung (BzGA)
Thank you for your attention!
attention!
More information @
www.emis-project.eu
[email protected]
26
Study coordination
Axel J. Schmidt (Robert Koch Institute, Berlin, DE)
Associated Scientists
Rigmor Berg (Norwegian Centre for the Health Sciences, NO)
Michele Breveglieri (Regional Centre for Health Promotion , Verona, IT)
Percy Fernández-Dávila (Centre for Epidemiological Studies on HIV/AIDS in Catalonia, ES)
Laia Ferrer (Centre for Epidemiological Studies on HIV/AIDS in Catalonia, ES)
Cinta Folch (Centre for Epidemiological Studies on HIV/AIDS in Catalonia, ES)
Martina Furegato (Regional Centre for Health Promotion , Verona, IT)
Ford Hickson (Sigma Research, London, UK)
Harm J. Hospers (Maastricht University, NL)
Ulrich Marcus (Robert Koch Institute, Berlin, DE)
Minna Nikula (ECDC consultant, FI)
David Reid (Sigma Research, London, UK)
Todd Sekuler (Social Science Research Center Berlin, DE)
EMIS Collaborating Partners: AT: Aids-Hilfe Wien; BE: Institute of Tropical Medicine, Facultés Universitaires Saint-Louis, Ex Aequo, Sensoa, Arc-en-ciel;
BG: National Centre of Infectious and Parasitic Diseases, Queer Bulgaria Foundation; BY: Встреча; CH: Institut universitaire de médecine sociale et préventive, Aids-Hilfe
Schweiz; CY: Research Unit in Behaviour & Social Issues; CZ: Charles University (Institute of Sexology), Ceska spolecnost AIDS pomoc; DE: Berlin Social Science Research
Center (WZB), Deutsche AIDS-Hilfe; Federal Centre for Health Education (BZgA); DK: Statens Serum Institut, Department of Epidemiology, stopaids; ES: National Centre of
Epidemiology, stopsida, Ministry of Health and Social Politics; EE: National Institute for Health Development; FI: University of Tampere (Nursing Science), HIV-saatio/Aidstukikeskus; FR: Institut de veille sanitaire (InVS), AIDeS, Act Up Paris, Sida Info Service, Le Kiosque, The Warning; GR: Positive Voice; HR: University of Zagreb (Humanities and
Social Sciences); HU: Hungarian Civil Liberties Union (TASZ), Háttér; IE: Gay Men's Health Service, Health Services Executive; IT: University of Bologna, Arcigay, Instituto
Superiore di Sanità; LT: Center for Communicable Diseases and AIDS; LV: The Infectiology Centre of Latvia; Mozaika; MD: GenderDoc-M; MK: Equality for Gays and Lesbians
(EGAL); NL: schorer; NO: Norwegian Knowledge Centre for the Health Services, The Norwegian Institute of Public Health; PL: National AIDS Centre, Lambda Warszawa; PT:
GAT Portugal, University of Porto (Medical School), Institute of Hygiene and Tropical Medicine; RO: PSI Romania RS: Safe Pulse of Youth; RU: PSI Russia, La Sky; SE: Malmö
University, Riksforbundet for homosexuellas, bisexuellas och transpersoners rattigheter (RFSL); SI: National Institute of Public Health, Legebitra, ŠKUC-Magnus; SK: OZ
Odyseus; TR: Turkish Public Health Association, KAOS-GL, Istanbul LGBTT, Siyah Pembe Ucgen Izmir; UA: Gay Alliance, Nash Mir, LiGA Nikolaev; UK: City University, London,
CHAPS (Terrence Higgins Trust); EU: ILGA-Europe, Aids Action Europe, European AIDS Treatment Group, GayRomeo, Manhunt and Manhunt Cares
EMIS Advisory Partners: Executive Agency for Health and Consumers (EAHC), European Centre for Disease Prevention and Control (ECDC), WHO-Europe