The french Association des Personnes de Petite Taille and the

ACCESS PLAN TO BROUSSAIS HOSPITAL 
The french Association des Personnes de Petite Taille
and
the Reference Centre of Constitutional Bone Diseases
of Necker Hospital
Invite you to
CO N TACT 
Danièle Hugues
+33 6 76 47 89 22
[email protected]
1 st INTERNATIONAL MEETING
OF PEOPLE WITH
ACROMELIC DYSPLASIAS
2014 November 29th
from 9:15 am to 5:00 pm
We thank our partners:
Plateforme Maladies Rares
Hôpital Broussais – Salle Pétunia
96, rue Didot 75014 Paris
PROGRAM OF THE MEETING
9:15
am
Reception of the families.
12:00
pm
9:45
am
10:00
am
Speech by Joseph Vandendriessche, APPT’s president.
Introduction by Danièle Hugues, desktop mission on Medical
Research for APPT.
13:30
pm
Coffee break.
15:30
pm
11:00
am
Workshop dealing with therapeutic education of the patient by
Paul Jimenez, assistant manager of Alliance Maladies Rares
(Rare Disease Alliance).
Time for exchanges.
Update on medical research by Carine Legoff, Researcher at
Inserm.
16:00
pm
11:30
am
Best practices of physiotherapy by Anne Bost-Hellot
Physiotherapist.
General medical presentation of the different acromelic
dysplasias by Professeur Valérie Cormier-Daire.
14:30
pm
10:45
am
Buffet lunch on the spot.
Conclusion and end of the meeting and sharing while having a
drink.
Presentation on the different cardiac, pulmonary and ENT
complications by Docteur Anne Cavau*.
* to be confirmed
1 s t I NT E R N AT IO N A L M E E T I N G O F P EO P L E W ITH ACRO M E LIC DYS PL A S IA S