2014 DSAH Annual Report - Down Syndrome Association of Houston

DSAH
20
14
The Down Syndrome Association of Houston's Mission is to
provide programs and support to individuals with Down
syndrome, their families, and the professionals who serve
them, and to create awareness in the community through
advocacy, education and medical outreach.
Celebrating 40 Years
of Love & Hope
2014 marked 40
years of celebrating
Love & Hope in our
community. With a
wonderful home,
close to 2,000
members and a
strong bond, we can
definitely say that
DSAH is here to stay.
“DSAH is our
extended family”
~ DSAH Member
We envision a world in which all people with Down syndrome
have the opportunity to enhance the quality of life, realize
their life aspirations, and become accepted as a wonderfully
normal part of a very diverse community.
We invite the Houston community to get involved with DSAH. This is
a great opportunity for the community to learn about Down syndrome.
Our volunteers are a valuable asset that assist with childcare during
conferences, trainings, dancing at our Club 21 events, setting up for
World Down Syndrome Day or at the Buddy Walk. We change
perspectives profoundly by helping volunteers understand that life
with Down syndrome is both ordinary and remarkably fulfilling.
TODAY!
2014
P2 In the Know—
The ABLE Act Part III
Members stay connected with
DSAH via E-Blasts and Social
Media! E-Blasts are received
by over 1,000 recipients and
with over 5,000 followers on
Facebook our members keep
up to date on the latest
education, upcoming social
and fundraising events,
DSAH publications, and
volunteer opportunities.
P4 & 5 Where Hope
Grows & Camp Ability
P6 & 7 Pool Party & The
Houston Buddy Walk
P7&11 Circles Program &
Community Groups
DSAH Today is the monthly publication that keeps DSAH
members, supporters and the Houston community updated on
upcoming programs, events and social activities for individuals
with Down syndrome.
Our publication is received by almost 2,000 members among
them several medical Service providers in the renown
Houston’s Medical Center.
The Down Syndrome Association of Houston could not operate
without the generous support of approximately 1,000 volunteers
and 5,100 volunteer hours! From our Smart Start program
volunteers to our Houston Buddy Walk, volunteers make a huge
difference! Our Volunteers come to us via our DSAH.org website,
Volunteer Houston, and membership.
with
New Beginnings is
for parents with
babies under 6
months with DS that
met once a week for
four weeks with a
special guest/topic
each week. This
program is intended
to help families of
newborns with Down
syndrome to get to
know their baby as
well as to know what
to expect when
receiving therapy.
Our weekly topics included:
*
*
Speech Therapy
Occupational Therapy
*
Physical Therapy and
*Baby Massage sessions
Club 21—A club for teens and adults
with Down syndrome
Club 21 offers a variety of monthly social
events for DSAH members 12 to 99 years
of age with Down syndrome. The events
include dances, Bingo and Spaghetti nights,
Movie nights, sleepovers, Secret Santa
Shopping and many more!
New Baby Gift Baskets
Hand delivered baskets by our dedicated parents and
staff to our parents of newborns with DS in the
hospitals. The baskets are full of baby items as well
as the latest information on DS. In 2014 DSAH
proudly delivered 36 baskets in 19 hospitals in the
Houston and surrounding areas and 8 Pre-natal
packages.
2014 NBGB
Statistics
Gender:
Boys: 23
Girls: 13
January: 4 July: 2
Ethnicity:
February: 3 August: 3
White:11
September:5
March: 3
African American: 1
October: 4
April : 2
May: 0
November: 5
Hispanic: 21
December: 5
Asian : 2
June: 0
Other: 1
2014 Club 21 events
had an attendance
of 630 members!
Education for Life Program
This is the first program geared towards
the continuing education of adults with
Down syndrome in the Houston area.
Students meet five times a week to
continue their post-high school education
as well as an opportunity to improve their
socialization and learn vocational skills.
In 2014, the Education for Life program
served 42 students.
13 Shows The DSAH Pantomime Troupe
In 2014 Expressive Musical Entertainment!
The Down Syndrome Association of Houston (DSAH)
Pantomime Troupe has been entertaining the Houston
community since 2010. The troupe consists entirely of
adults with Down syndrome who share a love of music,
creative movement, and performing for others.
Camp for All and Camp Ability
DSAH is proud to partner up with Camp for All to offer
our members a fun-packed weekend for the entire
family. Our Camp for All Weekend is in March and it
attracts an approximate of 70 to 100 members.
DSAH is also proud to offer Camp Ability. This is a
summer day camp for children/teens with Down
syndrome and their siblings ages 3-17 years at our
Resource Center. We have crafts, music, games,
reading, writing, movement, a snack, and most of allfun!
I Love going to Camp for All!
Especially fishing!
~ DSAH member
64 campers @ Camp 4 All
&
45 campers @ Camp Ability
DSAH Family Events
DSAH is proud to offer events
where all of our members have an
opportunity to network, learn more
about Down syndrome and start
building friendships for life. Some
of the events are The Pool Party,
The Holiday Party, and annual
conferences.
Outreach Program
Our Outreach Program provides information on an
Educational and Medical level to our community. Our
group seeks to increase the awareness of people with
Down syndrome and some of these
groups include
health professionals,
high school faculty
and students,
graduate students,
and so on.
The DSAH World Down Syndrome Day celebration on 3/30 drew over 700 attendees.
With a 3,000 egg hunt, food and entertainment for all, our community definitely
enjoyed themselves because our kids are
“One in a Minion”!
Accomplishments
Our DSAH Legislative Awareness Board member,
Ruth Lore Mason was very active in 2014. So much
that she was recognized as Advocate of the Year by
Parent to Parent Network giving her great recognition.
Her recognition didn’t just stop at an award but she
was also appointed as a member by Governor Perry
to the Texas Council for Developmental Disabilities.
With this new position, Ruth Lore Mason also
received a Resolution for Debbie Riddle for all of her
hard work in advocating for adults with developmental
disabilities.
Thank you and congratulations to Ruth Lore Mason!
SB7 – The Assessment Tool
In 2014, there was great accomplishment with Senate Bill 7 that allowed for the
Assessment Tool of activities of Daily Living. This tool is to be used when assessing
individuals with disabilities in long term services. Previously the assessments were
done on a medical based model but thanks to the amendments, they will now be
based on a social model.
The Woodlands
Community Group
155 online members
Pearland
Community Group
97 online members
Spanish
Community Group
27 online members
Spring Community
Group
82 online members
Baytown Community
Group
59 online members
DSAH realizes the need for the support
our members need in their own
community and we have been able to
increase our number of Community
Groups. In 2014, DSAH had 11 groups.
Pasadena
Community Group
93 online members
D.4.D.S.
Community Group
17 online members
Fort Bend
Community Group
20 online members
Inner Loop
Community Group
78 online members
Katy Community
Group
108 online members
Northwest
Community Group
85 online members
Online members are based on our Facebook Group pages
From Heartbreak to Happiness
The Down Syndrome Resource Center was
broken into on April 9, 2014. All of our flat
screen TV’s, desktops and laptops were either
damaged or taken.
Our students and staff were heartbroken.
The Response was INCREDIBLE!
Houstonians came to the rescue of the Down
Syndrome Association of Houston!
As soon as the media got wind of our situation, the
response from our community was incredible!
Everything and even more got replaced!
DSAH member's city of Residency
1000
900
800
910
700
600
500
400
300
381
200
100
0
110
85
61
46
43
39
36
34
34
33
31
26
DSAH member's city of Residency
DSAH has 1,934 members in our membership
database.
22
22
21
Income Summary
$554,054.95
January to December 2014
Buddy Walk Awareness Event
Education 4 Life
Donations & Membership
Programs
Fundraisers
Club 21
Community Events
Other
Reserve
Expense Summary
$554,054.02
January to December 2014
Education for Life
Buddy Walk
Programs
General & Admin
Public Relations
Club 21
Community events
Fundraisers
Other
The 2014 Houston Buddy Walk and Buddy Run brought in
12,000 supporters at the Minute Maid Park! With on stage
entertainment, a Royal Family and prizes, the families
definitely had a great time!
DEFINITELY MAKING 2014 OUR BIGGEST
CELEBRATION EVER!
2014 Houston Buddy Walk®
Demographics
The Down Syndrome Association of
Houston is happy to report an increase in
our attendance, the number of teams
created, and the number of volunteers.
Here are our statistics from our 2014
event:
•$265,980 was raised for DSAH to continue
to provide support and services to families
with individuals with Down syndrome.
•DSAH’s biggest fundraiser
•Number of walkers 9,370
•327 Teams
•347 were individuals with Down syndrome
•748 volunteers
•14th consecutive year
Top Ten Fundraising Teams for 2014
1-Sadie’s crew-Saders
2-Mason’s Mob
6-Christopher ’s
Commanders
Alexandra Hobstetter
Buddy of the Year 2014
7-Team Avery
3-Nick’s Army
8-Cruzin
4-Joshi’s Avengers
9-Reese’s Raiders
5-Hannah Halfen Angels
10-DJ’s Jammers
2014 BW Committee, DSAH Board & Staff
3RD Kind Customz
AADE
American College of Healthcare
Executives
APEX Remington Pipe & Supply Co.
Arbor Care
Aspire Pediatric Therapy Inc
Bates, Jack
Bearden, Brenda and Emmett
Big H Transport LLC
Black, Donald
Blahuta, Keith
BP Fabric of America Fund
Cameron Recycling
Cathedral Energy Services
Chevron Humankind
Chad and Susan Dudley
Community Resource Credit Union
Coons Construction
Cotton Logistics
Craftmasters
Educational Fund of the S. E. Texas
Chapter
Encompass Care
EP ENERGY
Estes, Darryl
EZ Line Pipe
Fahmi, Ramy
Faith Pediatric Rehabilitation
Farmers Insurance
Farris, Mickey
Fed Ex Ground
Fontenot, Ann and William
Fouts, Mary
Frank Glass Family Partnership LTD
Friends & Family of Brayden's Buddie's
Gerard, Jennifer and Brett
Halliburton
Hanst, Melissa
Haworth / Hudson Building
Holloway Family
Houston Architects & Engineer's Bowling
League
Hudson, Wesley
Jackson, James
JD Rush
Joiner Law Firm PPLC.
Kelsey-Seybold Clinic
Key Energy Services, LLC.
Kids Resort Inc.
KMS transportation LLC
Linn Thurber LLP
Long Drive Dog & Cat Hospital
Manvel Lions Club
Manvel Mattress Furniture Gallery
Mason's Mob Family & Friends
MASTEC
Matthews-Daniel Company
Mayer Electric Supply Company, Inc.
Mecor Usa Inc.
MEDCO - Medical Supply
Mercer
Molly Maid
Montgomery, Janet
Tradition Bank
Nic's Army Family & Friends
Triolo, Holly
Newfield Foundation
Triton Global, INC.
Paper Clouds Apparel LLC
Tucker, Barnes, Garcia &
Prudential
de la Garza, P.C.
Redman Communications
Victory Transportation
Reef Industries
Systems
Roche, Gregory
Volkmann, Arthur
Rosemont Realty
WCA Management Corp.
Ruiz, Elizabeth
Watson, Amanda
Ruiz, Ramon
Web Marketing
SHFK II LLC
Associates
Simmons & Fletcher, P.C.
Western Rustic
Snapshotz Photography
Xtreme Airhockey
Spencer, D.A & M.A.
Zuniga, Rosario
Stripes LLC
Southwest Quality Molding
SportsClips - Magnolia
Tam International Inc.
Team Alloys
Tex-Tube
Texas Insurance & Financial Serv.
Texas Laundry Service Co.
The Lyle FDN.
The Rudisel Law Firm, P.C.
If your name is not reflected, please let us know.
DSAH Board of
Directors 2014
2014 DSAH Staff
ANN FONTENOT
PRESIDENT
SHEILA PATTERSON
VICE PRESIDENT
BELINDA GARZA-GADDIS
SECRETARY
ALEJANDRA
LIMA
EXECUTIVE
DIRECTOR
NELSI
HENRIQUEZ
EXECUTIVE
ASSISTANT
MICHELLE
TRIGO
PROGRAMS
SUPPORT
JULIA
MOCK
GRANT
WRITTER
VERONICA
MILLARE
EDUCATION 4
LIFE DIRECTOR
JOHN HARRISON
TREASURER
DAVID BOGUE
COMMUNITY OUTREACH
KATIE BRANNON
SPECIAL EVENTS
LILIA COOPER
PUBLIC RELATIONS
MONSERRATT
PARDO
EDUCATION 4 LIFE
COORDINATOR
MELISSA
KHATTAK
E4L
INSTRUCTOR
JUANA
RANGEL
E4L
INSTRUCTOR
DIANE
COULLIER
E4L
INSTRUCTOR
ELLEN
STIDHAM
E4L
INSTRUCTOR
Down Syndrome Association of Houston
7115 W. Tidwell Bldg. K Suite 106 Houston TX 77092
www.DSAH.org ~ [email protected] ~713.682.7237
AUDREY
TALLENT
E4L
INSTRUCTOR
BRETT GERARD
DEVELOPMENT
MICHAEL HARVEY
LEGAL COUNSEL
JJ LADNER
NEW PARENT CONTACT
RUTH MASON
LEGISLATIVE OUTREACH
Special THANKS to our photographers
Laura Popiel
Photography
Kerri Liles
Photography
Monserratt
Anahy
Photography