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Presentation Slides
hungerhurtsbut
starvingworks
CharacterizingthePresentationof
EatingDisordersOnline
JessicaPater
OliverHaimson
NazaninAndalibi
ElizabethMynatt
WARNING
Thispresentationincludesmedia
thatcouldbeatriggerand/or
disturbinginnature.
1in10Americanssufferfroman
eatingdisorder
AnorexiaNervosa
BulimiaNervosa
Binge-EatingDisorder
OtherSpecifiedFeedingorEatingDisorder
(OSFED)
Cachexia
Orthorexia
http://anad.org
Image:www.proana.com
Motivation– UnderstandingEatingDisorders
• Theincidenceofanorexiainyoungwomen
15-19hasriseneachdecadesince19301.
• Anorexiahasthehighestmortalityrateof
anypsychiatricdisorder2.
• Awoman15-24is12x morelikelytodie
thanawomanwithoutanorexia3.
1 Hoek&vanHoeken,2003
2 Arcelus,Mitchell&Wales,2011
3 Sullivan,1995
Motivation– ConnectivityPatterns
92%ofteensonlinedaily
24%reportbeingonline“almostconstantly”1
Platforms:
Facebook71%
Instagram52%
Snapchat41%
Twitter33%
Vine24%
Tumblr14%
Priorworkshowsthispopulationusesocial
platformstoaccessandpromoteeatingdisorder
behaviors2
1
2
PewTeens,Social Media&TechnologyOverview2015
Pateretal.ThisDigitalLife:ANeighborhood-Based StudyofAdolescentsLivesOnline
Motivation– Networks
Borzekowski,Detal.e-Anaande-Mia:Acontentanalysis ofpro-eatingdisorderwebsites (2010)
Shade, L.Weborexics:TheEthicalIssuesSurrounding Pro-AnaWebsites (2003)
Motivation– HidinginPlainSight
ResearchQuestions
Howiseatingdisordercontentorganized
withinsocialmediaplatforms?
HowdoEDpostersrepresentthemselvesand
aretheresimilaritiesacrossplatforms?
Whatotherhealthissuesareself-disclosedin
conjunctionwithED?
Overview
Methods
HashtagAnalysis
MediaAnalysis
Challenges
EthicalConsiderations
Methods
Selected3platforms:Instagram,Tumblr,
Twitter
UsecommonED-relatedtermstodo
preliminarysearchforcontent
TI
anorexia,pro-ana,
proana,bulimia, promia,promia,eating
disorder, pro-ed
TR
anorexia,proana,
bulimia, promia, eating
disorder, anamia,
proanamia,EDNOS,
thinspo, thinspiration
Createdanupdatedlistoftermstousefor
datacollection;575totalpostsindataset
Methods
InductiveCoding
• Hashtags
• Media– image,video,gif,posttext
Methods
InductiveCoding
• Hashtags
• Media– image,video,gif,posttext
Methods
InductiveCoding
• Hashtags
• Media– image,video,gif,posttext
Hashtags
6705totalhashtagscollected(457uniquetags)
Total
Hashtags
Avg.
tag/post
Std. Dev.
Range
Tumblr
3433
20.2
7.9
2-33
Instagram
1939
12.3
8.1
1-30
Twitter
1333
5.4
3.9
1-18
Variabilityofagiventerm:
anorexia
ana
anne
annie
anorecia
anorectic
anoressia
anorexia
anorexic
anorexique
anorexix
Hashtags
Hashtagswerethematicallycategorized.
15.0% Anorexia
7.1% Self-Injury
3.4% Food
9.5%
Bulimia
5.2% Suicide/Death
3.3% Identity
8.9%
GeneralEating 5.1% Recovery
Disorders
3.3% MentalHealth
7.6%
Weight
4.0% Body
1.7% SocialSupport
7.4
Inspiration
4.0% Depression
0.9% Fitness
www.jesspater.com/data
Media
Archetypes
• Thinspiration
• EDJourney
• Diet
• Mismatches
• SuicidalIdeation
• Self-harm
• OtherMentalHealthIndicators
ThinInspirations…Thinspo
Thinspo- SocialSupport
EatingDisorderJourney
EatingDisorderJourney
Self-harm
MentalHealthContent
Depression
MentalHealthContent
Relatable,depression,
anziety,selfharm, suicide,
depressed, depressing,
depression, quote,
mentalillness, bulimia,
bipolar,
borderlinepersonality,
eatingdiosrder, ana,
anorexix,mia,ed,bd, bdp,
bulimique, cutting, scars
MentalHealthContent
Depression– 40.6%ofallposts
Excludingdepression– 18.9%
Challenges
Censorship
ContextisImportant!
ContextisImportant!
asf
EthicalChallenges
• Outsiderstothecommunity
• Researcherimpact
• Userconsenttouseofdata
• Whatdoesthecommunitythink?
• JoinusatICWSM!!
https://icwsmethics2016.wordpress.com
FutureWork
Validationwithclinicians
Dopeoplewithdiagnosedeatingdisorders
engagewiththesetypesofonlinebehaviors?
Evaluatingdiagnostictoolsandscreeners
IsitpossibletocaptureonlineED-related
onlinebehaviorwithcurrentdiagnostictools?
Thankyou
Questions?
JessicaPater
[email protected]
www.jesspater.com
www.jesspater.com/data

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