Sensory Integration ~ From Idea to Reality
Transcription
Sensory Integration ~ From Idea to Reality
Winter 2003 “Ability Beyond Disability” Realize Newsletter of the Muki Baum Association Sensory Integration ~ From Idea to Reality by Paula Aquilla “ The vitality of thought is in adventure. Ideas won’t keep. Something must be done about them”. some persons may not be able to process touch effectively. This makes it difficult for them to grasp and hold objects such as a fork or a pencil, or to give a hug without hurting the person being hugged. Nehama Baum had an idea; She wanted to create a specialized physical environment, which supported a therapeutic approach that motivates the people we serve and provides them with meaningful activities. Many of our people find the worlds to be very confusing; a ‘swirl’ of sensations that are difficult to piece together with any meaning. They experience sounds that seemingly spring up unexpectedly, sounds of varying volumes and pitches, which can be unsettling and painful. Visual input can be too bright and glaring and at times difficult to process. All the colors of the light spectrum can make what they see disjointed and inconsistent. Their sensation of taste and smell may be hypersensitive thus making it difficult for them to eat a meal while in the same room with other people. Contrary to these individuals, some other people can crave sensation through taste and smell thus making the food of other people in the room irresistible. For individuals who are sensitive to touch, such input may be perceived as painful. In addition, Distressed sensation from the system of balance may be anxiety provoking thus creating fear on stairs, swings, or even when going through doorways. However, when balance sensations are sought after, they may create an insatiable need to move. Proprioception is the sensation that enables us to know the position of our body in space. It helps us to plan our movements and enables us to speak. People who have difficulty interpreting sensations through this system may constantly seek out pressure to their body to alert them about its boundaries. The lack of perception of the boundaries of their body’s causes inappropriate social behavior since personal space is not well understood. Alfred North Whitehead English Philosopher and Mathematician Nehama visited many programs in the world in which people with special needs are served. Realizing the lack of a suitable sensory therapy program in Canada for people with developmental disabilities and psychiatric / emotional disorders, she combined her professional knowledge and experience and created an amazing program called the Sensory Motor Therapy Centre. The goal of the centre is to provide a supportive sensory enriched and creative environment that engages the nervous system of a person through careful sensory input. This sensory enriched environment, with staff support, will also motivate the individual to participate in exploration and self-discovery through active learning. When you walk into the bright and colorful setting, you are struck at once by a feeling of calmness. We know that space is very important in creating the right environment and appropriate (con't on page 18) In This Issue Message from the Executive Director Vocational Program Day Programs Residential Program Sensory Motor Therapy Possible Dream Gala Bowl For Dreams Queen’s Golden Jubilee Parents Column Message from the Editors 2 4 5 8 10 12 13 16 19 20 Board of Directors Constance Gilbert President Jeffrey Goldfarb Treasurer Dr. Alan Pollard Secretary Board of Directors Sam Sarick (Past President) Brent Bromwich Vilma Cortellucci-Fiuza Jonathan Eckler Joan Goldfarb Larry Iskov Peggy Dowdall-Logie, LLB Frank Merlihan Diana Spacca Joe Tersigni Goffredo Vitullo Executive Director Dr. Nehama T. Baum, Ph.D., C.Psych. Our Mission It is our mission to provide people who have developmental and emotional disabilities with a window of opportunity through which they will be able to develop their talents; actualize their potential; fulfill their ability; achieve personal growth and become contributing members of society. A Message from the Executive Director The New Year marks a time of change and new opportunities. In this spirit, it is my pleasure to introduce you to our new Board President. Connie Gilbert has served on the Muki Baum Board of Directors for over eight years and for the past four years she has served as our Vice President. Connie has served on many Boards throughout the years, including the McMichael Art Gallery, the Art Gallery of North York and CICF. Connie, who is a music teacher by profession, is a tireless volunteer dedicated to the Muki Baum Association, its Programs and its Mission. She is exactly the leader that will take the Association to new professional and organizational heights. Sincerely, Nehama T. Baum, Ph.D., C.Psych. Executive Director A Message from the Board President I would like to take this opportunity to convey to you how honoured I feel to have become the new President of the Muki Baum Association. During my tenure at the Association I have learned to appreciate the ef fectiveness and integrity of the treatments and services we provide to the children and adults we serve. One such example is the new Sensory-Motor Therapy Centre which opened in October 2002. You can read more about the Centre throughout this issue of Realize. I would like share with you that, in the short time it has been open, we are already witnessing dramatic changes in the children and adults who participate in the program. The research we are conducting in the program will analyze the effects of this therapy. I have visited the program and was extremely impressed with what I saw. I invite you to visit the Centre and view our new facilities first hand. To arrange this, please contact Mishi at 416.630.2222. As President of the Muki Baum Association I will continue to promote creativity in the development of required treatment programs. Programs that improve the quality of life of the people we serve and provide them with opportunities to evolve as autonomous individuals who are part of the community and actively contribute to it. 265 Rimrock Road, Suite 209 Toronto, Ontario M3J 3C6 Telephone (416) 630-2222 Fax (416) 630-2236 www.mukibaum.com Charitable Business Registration # 10379 8245 RR0001 2 The New Year is symbolic of a new beginning. As President I will support the continuation of the Muki Baum Associations tradition of excellence in addition to supporting the ongoing creation and development of future pioneering treatment programs. Sincerely, Constance Gilbert President Announcements The Order of Ontario We are pleased to announce that Joan Goldfarb, a long standing member of the Muki Baum Association Board of Directors, has been awarded The Order of Ontario. This Award is the province’s most prestigious official honour recognizing and honouring those who have enriched the lives of others by attaining the highest standards of excellence and achievement in their respective fields. Over the years, Joan has contributed tremendously to children and adults suffering from complex handicaps through her work here at Muki Baum. She has given valuable direction regarding service and treatment the Association is providing, she has chaired several central committees, and supported us in our mission to provide support to children and adults with dual diagnosis in every way possible. We are very proud to sincerely congratulate Joan on this commendable achievement! Business Excellence at the Muki Baum Association by Mishi Methven On Thursday November 21 2002, at the 13th annual North York Chamber of Commerce Business Excellence Awards Dr. Baum accepted the North York Chamber of Commerce Business of the Year Award in the Public Sector on behalf of the Association. Muki Baum staff, Board of Directors, family and friends were on hand to support Dr. Baum. Constance Gilbert, President of the Muki Baum Board of Directors, introduced Dr. Baum to the room, and the award was presented by Andre Beaudry, President of the North York Chamber of Commerce. Dr. Baum gave a touching acceptance speech in which she thanked her family, staff and friends for all the support and dedication they have offered to her and the Association over the years. The evening was a very exciting one as the award presented to Muki Baum serves as a reminder of the hard work, determination and strong commitment that both Dr. Baum and the Muki Baum Association have made in helping to make a difference in the lives of countless people we serve. 3 Vocational Program by The Vocational Team The Vocational Program continues to be busy, and this fall has been no exception. The program has ten full time employees, and many part time employees who attend on a regularly scheduled basis. provide the people we serve with information regarding vocational skills, such as employment, housing, training, and workshops. We invite you to come and visit this Centre. To arrange a visit, please contact Jennifer at 416.398.3028. There have been several exciting and challenging contracts that we have been working on. There were several tissue paper contracts from Creative Bags, two contracts from Ucan and Source for fasteners, which consisted of us working with screws and toggles. Part of the contract included placing four screws into a little plastic bag. This project proved to be difficult for many people, but no one gave up! A special congratulations goes out to Thanh who was able to complete the majority of this contract. There were additional contracts from John Bead Corp, many of which involved working with different beads of all shapes and sizes. As a result of the good work on these bead contracts, John Bead Corp recommended us to another company. This company is named Wow Communications and we are currently making heart bead necklaces for them, up to 5000 total! The vocational group would also like to visit Quebec City in 2003. They have decided to save some of their contract earnings and hope to do some fundraising in the coming year. This program continues to be successful and it has a lot to do with the effort and hard work of all the staff involved both full and part time. In conclusion, we would like to take this opportunity to thank Chad at John Bead Corp for his generous donation for our holiday lunch. The guys went to the Mandarin restaurant, and enjoyed the festivities immensely! The Vocational Program group recently attended Booth Industries for a tour of their facility. Booth Industries is a vocational program that is a part of the Salvation Army. The tour was a great one, and the people we serve learned a great deal about different vocational programs. Booth Industries started out in the basement of a church and is now able to support 100 workers!!! The excitement of the vocational group after taking the tour lasted for days! It was great, and many participants thought of new ideas regarding how we can expand our own program. In a fun surprise, while at Booth Industries the group met a former Muki Baumer who is now a worker there! Placements have started up again and continue to be a meaningful learning experience for the people we serve. At this time we would like to thank Wal Mart, Black Creek Pioneer Village, and Sheridan Nurseries for their support in providing us with placements. We would also like to acknowledge Radio Shack, who came on board this year. The group has also been working on meal planning and cooking. Some of the people we serve have started sewing again and in January a sewing program will commence. There is also a newly developed Resource Centre here. This Centre is intended to 4 YORKWEST PLUMBING SUPPLY INC. WOODBRIDGE 571 Chrislea Road, Unit #3 Woodbridge, Ontario L4L 8A2 Tel: 905-856-9466 Fax: 905-856-9438 Toronto Line: 416-743-0722 BARRIE 96 Anne Street South Barrie, Ontario L4N2E3 Tel: 705-727-9727 Fax: 705-727-9776 Toll Free: 1-800-293-4399 Day Programs Adult Day Program By Staff and Participants of the Adult Day Program The excitement just doesn’t stop at the Adult Day Program. We celebrated our Thanksgiving with a really nice meal for the people we serve and staff. As well, we ran successful Halloween and Holiday parties. These dances took place after hours and all who came had a great time. The costumes were really cool for the Halloween dance. In addition, the ladies group collected food for the food bank with great success. We would like to thank all the parents who helped out for our Thanksgiving lunch and all the staff who volunteered their time with the two dances: Linda Hogan, Cindi Shoot, Kathleen Drummond, Keith Scholskey, Vahe Avagyan, Marija Kutlesa and Jennifer Buchan. Also, special thanks to Andrika Sutton, Maria Pinto and the ladies from Group 6 for organizing the food drive which was a great success. Toronto Children’s Program by Eric, student of the Program On October 31, 2002 it was our Halloween Dance in the gym. The activities that the Spirit Committee and Room 4 did was a pumpkin carving contest. Room 10 won the prize. The slime guessing game. There was four different slimy things that people stuck their hands in and guessed what it was. Lance won this contest. Then there was the Jelly Bean contest where you have to guess how many Jelly Beans are in the jar. The winner of this contest was Carrie. The costume contest we had to pick the best costume for staff, and students male and female. The best staff costume was Scott Milner, the best female was Angela, the best male was Sammy. We all decorated the gym. York Region Children’s Program by Ruth Pellman During the school year the York Region Children’s Program has started a monthly theme and field trip program. This was implemented in order to give the children practical hands on learning experience to compliment their classroom work. So far this year, our monthly themes have taken us to Chudleighs Apple Farm (fall and apples), the Royal Winter Fair (farming and animals) and most recently to the Science Centre (science). The students enjoy going on monthly outings and it gives them the opportunity not only to broaden their educational skills but also to work on their community integration and social skills. The best part I liked at the Halloween Dance was the pumpkin carving contest. Class three has taken the theme months one step further and travelled to the Movie Theatre where the children were able to further develop their community skills. Congratulations go out to Jesse, Christopher, Eddie, Jeffrey and Kevin for a successful swimming team. Way to go guys!! 5 The staff and friends of the Muki Baum Association would like to offer their sincerest condolences to the Boermans family. The loss of Jackie, daughter, sister, aunt and friend, will be deeply felt by all. Jackie Boermans passed away suddenly on January 6, 2003 at the age of 39. The Muki Baum Association held a memorial service for it’s staff and the people we serve. This letter was written by one of the staff members and was read aloud at the ceremony. Global Television applauds the efforts of Dear Jackie, You came into our lives for such a short time. You brought us joy, love, laughter and even tears, you hae given us many happy and unforgettable memories. The way you were never afraid to explore your fears, dreams, anger and love is what made you so special. I know that you are now in a world where you will not have to question, struggle or live by any one else’s rules. You are free to do what you want, when you want and however much you want without guilt or hardship. You’ve shown me that despite your struggles and temptations you are truly a kind and loving person. You’ve shown us your true self. You’ve taught me what it is to be a patient and kind person and for this I will always be grateful to you. Thank you for letting us into your life and into your heart. You’ll never be forgotten. I’ll miss you. Love, Mariya Make a Donation to The Muki Baum Association By Purchasing Cards for all occasions! the Muki Baum Association Birthdays, In Memorium, Anniversaries and wishes them every success with their fundraising. Our Different Cards Feature Reproduction of Original Art designed and created by the people we serve. For more information, please call (416) 630-2222 6 The Muki Pulse Team Speaks Muki Pulse is a newsletter written by 3 people at the Adult Day Program: Leroy, Sandra and Arif. The newsletter has been in production for over one year now. The following The Muki Pulse Team takes a break. are some of their thoughts about being a part of the Muki Pulse Newsletter production team: It’s a lot of hard work and fun working for the Muki Pulse. It requires a lot of concentrating. We do movie reviews and music reviews. We did a review of Remy Shand. We’ve taken pictures of different events like Thanksgiving and Christmas. We would like to put our newsletter on the Internet soon. Leroy: I love working for he Muki Pulse because it’s fun, educational and we learn something. My favourite article was writing about Remy Shand “Take a Message” CD Review. Sandra: I like working for the Muki Pulse because it is less stressful than working for City TV. I enjoyed writing about the new vocational program because it is the place that I work at now. Arif: You know what I like to do? I like to get coffee when I work on an article. I like working with the whole team: Leroy, Sandra & Liz (staff). Sports is a good thing to write about. I enjoyed writing about it. It is hard to list all my favourite articles and stories because I like everything. Canada Post Opens Shop at Toronto Children’s Day Program By Mishi Methven On Thursday December 5th, Canada Post employees from the Downsview Station A Post Office joined students, teachers and postal officials at the Muki Baum Toronto Children’s Day Program to celebrate the launch of the school’s first ever mini post office. opened the Muki Baum Post Office and the first letter was processed through the school’s new postal system by Peter Hooker, Supervisor of Downsview Station A. Muki Baum is one of thirty-five schools within the Toronto District School Board, and is the first one to set up their own post office with Canada Post’s help and the strong support of Valerie Davis-Kelly of the Toronto District School Board. The service, which will primarily transfer letters from class to class, was designed to help the students gain an understanding and appreciation of the work that goes on in a post office, as well as promotes literacy by encouraging the students to write letters. The students are very excited about this new endeavour and everyone involved is sure to benefit greatly from the experience of operating the Muki Baum Mini Post Office. Building strong communities through partnership. Since we opened our doors in 1867, the Canadian Imperial Bank of Commerce has been working hard to make a difference not just through the economic impact of our business but through our efforts to make communities across Canada better places to live. Canada Post presented the newly appointed Postmaster Shawn, a student of the Program, with an honourary post office certificate. A ribbon-cutting ceremony with Steve Dewar, Canada Post Deliver Service Manager officially We strive to build partnerships with organizations and individuals who enhance the social, cultural and economic fabric of our nation. Through our CIBC Community vision program, we have committed more than $9.5 million over the past three years to healthcare institutions and charitable organizations across the country. We are proud of the thousands of CIBC employees who volunteer their time and energy to local and national fundraising initiatives such as the CIBC Run for the Cure, supporting breast cancer research, education, and awareness. We believe healthy, prosperous communities are the key to a brighter future for all Canadians and we are proud to support the Muki Baum Association and The Possible Dream. TM Trademark of CIBC 7 Residential Program destination! As we brave the frigid temperatures The Festival of Lights captured our eyes. We stopped into Casino Niagara for a quick spin! Oh we’re at our spending limit so it’s time to go home. Jim, Mark and Heather enjoyed spending Christmas with their families! Kennard By Staff and Residents The gang at Kennard has been busy over the past few months. Programming has been taking place during this season, as well as grocery shopping, community walks and many trips to the airport where we watch the airplanes on the runway(s). Leroy, Branko, Michael and Babs have celebrated yet another birthday, and the celebrations were exciting with all staff and peers involved. The house will be filled with festive decorations, loved ones and good cheer to usher in the holidays and the new year. Brooke residents and staff would like to wish their families a Happy Chanukah and a Very Merry Christmas. Also, a Happy and Healthy New Year! Finally, all of us at Lorraine would like to wish Raquel the very best, and to everyone a Very Merry Christmas and a Happy New Year! The residents and staff attended the Halloween party held at the Adult Day Program. This event was a blast. Everyone at Kennard has been busy Brooke Christmas shopping and of course, decorating. A Kris Kringle took place and all had a great time shopping for By Stephanie Griver the gifts. All of us at Kennard are Let the festivities begin! The Menorah excited to see what the new year of is lit. Jordan recited the blessing, 2003 has to offer. potato latkes are fried (sour creme and apple sauce to go with the traditional Chanukah delicacy of Lorraine course!). Jordan sings…and he sings on!!! The holiday lights glow around By Staff and Residents the house as residents join in with Ken Halloween has come and gone for leading a singsong with his guitar. Oh the gang at Lorraine. It was what a beautiful sound! celebrated by decorating the house with bats hanging from the ceiling, witches, ghosts, and spiderwebs on the walls. There was also some pumpkin carving, a dance at the ADP and lots of little trick-or-treat visitors as well. 55 Rockview by Aimee Brunner After a busy summer, the boys at 55 Rockview were ready to take on what the next few months had in store. Emilio, Scott, Tom, Shawn, and Brian dusted off their backpacks and headed back to school. The month of September was filled with hikes and trips to the park. The boys enjoyed many backyard barbeques and countless hours of endless water play. Now with the changing colours of the leaves and the plunging thermometer levels, our thoughts have turned to our annual Christmas tea celebration that It’s travelling time for the Brooke Shawn celebrated his 16th birthday, takes place a week before Christmas. residents and Niagara Falls is our and his brother Brian turned 17. They 8 each enjoyed their own birthday party with family and friends. Emilio, Scott and Tom have been participating and working hard in Expressive Art Therapy with Suzanne and Bear twice a week. The boys enjoyed a turkey dinner on Thanksgiving and before they knew it, they were decorating the house for Halloween. They also enjoyed outings to the Imax theatre and the Ontario Science Centre, as well as a trip to Niagara Falls. They practiced and perfected their bowling skills a number of times of and enjoyed going out for dinner in the community once a week. highlights of the season was being able to participate in supporting the Adult Day Program Holiday Party. by Anat Haimovici Everyone was so excited to see both This year at Fairlawn, the group friends and staff whom they miss. celebrated Chanukah creatively. With the Art Therapist’s direct help, our talented girls designed and manufactured their own paper lanterns. Each lantern included see through patterns linked to Chanukah symbols or bearing a personal significance. Fairlawn We retold the Chanukah story, we listened to traditional Chanukah songs, we lit candles in the lanterns and of course we ate “suvganiot”, the Chanukah doughnuts. Our annual Holiday friends and family dinner party to celebrate Chanukah Chanukah has always been the and Christmas was a wonderful festival of lights, but the lights in our success again this year. We have soul sisters’ eyes on that night were noticed that our guest list grows every brighter than ever. year and would like to thank the friends and family members of 26 Rockview for their continued support. 26 Rockview By Michelle Manning Recently, Emilio, Scott, Tom, Shawn and Brian went to Horton’s Tree Farm to chop down a Christmas tree for the house. Scott had a great time on the wagon ride and Shawn and Brian did an excellent job sawing down the tree. Tom’s dad and sister joined us and chose a tree for their home as well. After some hot chocolate by the fire, the boys were off to put up their tree and decorate the house. With the holidays approaching, Emilio, Scott, Tom, Shawn and Brian are looking forward to eating turkey and decorating the Christmas tree with their families. Happy Holidays Everyone! The Rockview household has been keeping busy the past few months. Rockview has been attending the York Region Sensory Motor-Therapy Centre with great success. One of the Westdale By Staff and Residents The gang at Westdale had a fun filled festive season. They decorated the house with colourful decorations and good old Saint Nick brought many gifts for under the tree. They had plenty of delicious meals with staff preparing the Christmas day dinner and Mrs. Dwyer, who stopped by boxing day and prepared dinner for the house. The guys brought in the new year quietly with a movie and the count down. The Westdale gang wishes everyone all the best for the new year! 9 Sensory-Motor Therapy Centre Sensory Therapy and Research by Dr. Nehama T. Baum Ph.D.,C.Psych When a new idea, a new concept, or a new therapeutic approach germinates, it usually creates a lot of excitement and a strong belief in its usefulness. However, this strong belief is not as yet proof for its effectiveness and success. The new Sensory-Motor Therapy Centre, its programs, its specialized sensory enriched environment and the sensory therapeutic approach are no different. We strongly believe that people who have an impaired sensory system need to experience a specially designed therapeutic program delivered in a specially designed environment in order to develop, learn, grow and improve. In order to validate this strong belief and hypothesis we felt that we needed to conduct at the Centre a Sensory Therapy Research Project. effectiveness as observed during the day. The reason for this level is the idea that being active participants in the design and creation of the program and its curriculum, staff have the faculty to provide feedback regarding the effectiveness of the structure of the program and the relevancy of its content. 2. Daily logging of the behaviours of the people the staff serve in their groups. The basis for this level is the notion that getting their sensory needs met, the general level of arousal of energy and of acting out behaviour, will be reduced and the people served will be able to concentrate better and learn and develop in areas which were previously blocked. 3. Daily logging of specifically identified behaviours expressed by three individuals chosen to be closely observed by all staff members. The premise for this level is the hypothesis that if sensory therapy is really effective, changes in these specific behaviours, which express sensory needs, A Day in the Life at the Sensory Program by Mike Pageau With the assistance of a couple of my colleagues from the University of Toronto, we have come to the conclusion that a participatory action research will be the best research design. In such a participatory action research design each staff member becomes a participating researcher, similar to the design of the development of the program. The staff gather observational data on a daily basis via a three level journal: 1. Daily logging of staff’s perceptions, feelings and opinions regarding the structure of the program and its 10 It starts with a greeting, “How are you today? Are we ready to start another day?” People put on their coats and dash for the van, the cold air outside is hard to stand. We drive for a bit, and then we drive a bit more, and we watch all the people and the passing by stores. We arrive in good time, and as we step through the doors, a warm air with the sweet smell of coffee pours. We hang up our coats and we make our way in, and then we all find our own place to begin. Some stretch, and some walk, and some other people talk, it’s a good day so far but what’s next on the clock? It’s time to make pretzels, or paper mache, or African drum beats that we record back and play. We swing in the hammock, or wheel by on chairs, or bounce on the trampoline, or walk up the stairs. And don’t forget all the nice visitors. We all try to help and clean up our messes, to reduce some of our future day stresses. We write in our books and we gather our things, and we say our goodbye, but our memories we bring. And at the end of the day, when it’s all said and done, we hope that everyone had some good fun. will be observed. Such documentation could easily provide not only qualitative but also quantitative results. in the “disruptive” behaviours through which they have previously manifested their sensory stress. It has been only seven weeks since the program and the research began. We have already been able to see some remarkable changes in the level of sensory tolerance of the participants, and changes This research project was designed as a pilot project intended to last for 18 weeks. However, with the preliminary results we already see, it is clear to us that we will need to continue with, and expand it. We will report in a later issue of Realize about the specific results of this research pilot project and about our research plans for the future. If you have any questions, suggestions or comments regarding this research project please do not hesitate to contact me at 416-630-2222. The Occupational Therapists Speak Out by Nupur Sahu and Jill Trecartin “The richer our sensory environment and the greater our freedom to explore it, the more intricate will be the patterns for learning, thought, and creativity” Carla Hannaford, Neuropsychologist and educator. arranged and presented in such a way that the level of complexity can be graded to match the level of skills of the people we serve. This way we try and provide meaningful and successful experiences for everyone involved. We have already seen some remarkable changes in some of the people we serve. For example, JK used to show interest in watching others draw and write. In the last few weeks we have seen a dramatic change in her level of engagement in the curriculum at the center. The activities seem to have broadened the range of her successful experiences and interests, and she is now actively participating in activities like paper mache, tissue art, tracing, cutting and so on. The opening of the Sensory Motor Therapy Centre on October 21, 2002 marked the beginning of what has been a very exciting and busy time, both for the people we serve and the staff. As the weeks go by, the people we serve never cease to amaze us - we feel honoured to be sharing this experience with them and appreciate the opportunity to better understand them NS is a young person we serve and she and their sensory needs. visits the centre once a week. Previously, NS often needed physical assistance to We are striving to offer many different help her get off the floor. During one of sensory experiences and opportunities to the people we serve. The centre consists of seven main rooms and although each has it’s own unique theme, the underlying purpose is to provide an opportunity to explore and engage in sensory-based activities. While the activities are designed in ways that meet the sensory needs of the people we serve, they are also meant to provide a “just right” challenge in order to develop the repertoire of skills of the people we serve. Each activity is her visits at the centre, it was noted that NS was successfully able to climb up an inclined slope. She did so repeatedly and the sense of accomplishment was evident in the smile on her face as she climbed the slope over and over again. Not only was she making use of an opportunity to practice skills in a safe environment, she was enjoying being successful at it too. Way to go!!! The above examples illustrate the tremendous windows of opportunity for self-discovery and growth offered by this program. None of this would be possible if not for the support and hard work of the staff, families, and the generous sponsors of Muki Baum. We would like to extend our thanks to all the people who have made this dream become a reality! 11 Possible Dream Gala The Possible Dream Gala, now in is sixth year, is more than just a black-tie event. It is a very special evening where you can be a part of helping to make dreams come true! Money raised from this event goes towards fulfilling the dreams and visions of the Muki Baum Association, which is to provide high quality day and residential treatment services for dually diagnosed adults and children. On this one special night, over 800 people come together for an evening of enchantment, fun and doing good. As the evening unfolds, guests enjoy a wonderful meal, dancing to the live band, New Image, a silent and live auction, an envelope pull, and special entertainment provided by the Desna Ukrainian Dance Company. There are many ways for you to become involved in our major fundraising event of the year - as a sponsor, volunteer, live or silent auction donor, or as a guest. Proceeds from the 2003 gala will be directed towards maintaining the high level programming and services that we strive offer. These much-needed funds will have an enormous impact on the lives of the many adults and children we serve. At the end of life we will not be judged by how many diplomas we have received, how much money we have made, how many great things we have done. We will be judged by ‘I was hungry and you gave me to eat, I was naked and you clothed me, I was homeless and you took me in.’ - Mother Teresa 12 Bowl For Dreams by Christine McLaughlin Each year this event gets better and better and this year is no exception. On Sunday May 25, 2003 our 9th Annual Bowl For Dreams & Family Fun Fest promises to be the best one yet! We are expecting over 200 bowlers from local schools, businesses and the community at large to join our program participants and their friends and families. We Challenge You to come on out and join us for an afternoon filled with fun, laughter and don’t forget the good natured competition! The Muki Baum Association takes great pride in the Bowl For Dreams and Family Fun Fest. We strive to ensure that it is a fundraising event in which the people we serve, their families and friends can truly participate in and enjoy. At the same time we are managing to raise much needed funds for the exclusive programs and services offered by the Association. One of our goals is, and has always been to create public awareness about the Abilities beyond the disabilities while educating people to focus on, and appreciate, not only the differences among us, but also the similarities. Each year, the money raised for the Muki Baum Association is put back directly into the programs that raised them. This year is no different. Each program has the opportunity to raise funds for field trips, much needed supplies, therapeutic sessions for the people who participate in them and so much more. Funds not raised through a program will be used to assist our York Region Children’s Program. For more information on this event and how to get involved, please feel free to contact us at 416.630.2222. VOLUNTEERS WELCOME! Partnership Opportunities Registration Form ■ Event Sponsor ■ Platinum Sponsor ■ Gold Sponsor ■ Silver Sponsor ■ Bronze Sponsor ■ Corporate Challenge Plus ■ Lane Sponsor ■ Proxy Bowler Name: Company: Address: Email: Phone: Method of Payment: ■ Cheque Card #: Please fax or mail this form to: Fax: ■ Master Card Exp. Date: $5,000 $ 3,500 $ 3,000 $ 1,500 $ 1,000 $ 350 $ 250 $ 50 ■ Visa ■ Amex Muki Baum Association 265 Rimrock Road, Suite 209 Toronto, Ontario M3J 3C6 Tel:416.630.2222 Fax:416.630.1931 Charitable Registration # 10379 8245 RR0001 13 Employee Profiles In the month of December, we asked all non-management team employees to tell us who, from their program, they thought went the ‘extra mile’. Each employee had the opportunity to choose one of their co-workers and we asked that they complete this statement: I feel this person deserves to be recognized because: Anat Haimovici Fairlawn Residence “Never have I worked with such a dedicated and compassionate worker as Anat. I feel she deserves to be recognized for caring so much about all the people at Fairlawn and all the work that needs to be done to ensure quality of life for these girls.” Anat has been working at the Muki Baum Association since the summer of 1993. Her current role is that of a Direct Care Worker III, a position she was promoted to in the fall of 2002. Her coworkers express a genuine respect for Anat and the work she does here at the Muki Baum Association. Good work Anat, thanks for all your efforts. Parvin Jalili Lorraine House “Of her ability to maintain a loving and peaceful atmosphere while at the same time is professional and displays multifocal behaviours.” Mike Pageau Sensory Motor-Therapy Centre “he is very supportive, there when you need him, willing to do what needs to be done.” 14 Rhea D’Singh Westdale Residence “She goes above and beyond the call of her duties when performing many of her duties at Muki Baum. She takes keen and formal interest that the people we serve at Westdale are provided with the best care possible.” Michelle Manning 26 Rockview “She is dedicated to her job. She meets the needs of the people we serve. Michelle also enjoys doing programming and taking the guys out. She goes the extra mile for them.” Edward Muthurajah 55 Rockview “He demonstrates a great deal of patience, understanding and recognition of each child’s individual needs and is, as well, great to work with.” Save A Tape Thank you for all of your support in donating your receipts to the Save-A-Tape program for 2002. The collection for the year was another success. Unfortunatley the program will not be continued for 2003. The support from our community has been appreciated and it encourage us to face the challenges as we continue to help the people we serve to live more independently with integrity. Thank you to everyone who supported this program. ATTENTION: CALLING ALL CYCLISTS AND RACERS We need you or your 10 person team to compete in a timed race to support the 2003 Cottage Program for the Muki Baum Association. This is your chance to WIN!! Your goal is to have the fastest cumulative time in your division so that you can be presented with a team plaque identifying you as CHAMPIONS. Your team will be given two separate runs around a specialized track at Exhibition Place in an Indy style, pedal-driven racecar. Teams are comprised of 9 peddlers (over age 16) and 1 driver (over age 21 with valid drivers license) with a minimum of (3) female participants. Each participant will automatically receive two (2) General Admission passes to the Molson Indy in July 2003, a Molson Indy Bike Challenge T-shirt, a souvenir team photo, including custom team sign and a food and beverage voucher. Your participation requires that your team raise a minimum of $1000.00. That’s only $100.00 minimum per person from friends, family and business associates. So, call and gather your friends and register with Julie before April 5, 2003. Submit your $100.00 pre-registration fee and team name by the Registration Deadline: April 5, 2003. For more information, contact: Julie Bonett Special Events Co-ordinator Phone: 416-630-2222 E-mail: [email protected] 15 Queen’s Golden Jubilee It gives us great pleasure to inform you that Dr. Nehama Baum, Muki Baum Association Executive Director, was chosen to receive the Queen's Golden Jubilee Medal for Service to Canada. This award designed by the Government of Canada in order to honour citizens who have made significant and important contributions to their communities and Canada as a whole; specifically Canadian citizens who have made outstanding and exemplary contributions to a community. Dr. Baum was chosen by Monte Kwinter, MP, both for her work with the Muki Baum Association and her volunteering efforts within the surrounding community. In addition, she was chosen for her pioneering innovations in the field of dual diagnosis. 16 The Muki Baum Charity Golf Classic is on its way back! On Tuesday August 19, 2003 we are hosting this fabulous event once again! Each year the Muki Baum Association hosts a best-ball foursome golf tournament to help raise funds to provide residential treatment services to children and adults with developmental disabilities and emotional/psychiatric disorders. This year’s awesome event will once again be held at Cardinal Golf Club in Kettleby, just north of Toronto. Book your golf spots now to avoid disappointment! Find out how to get involved with this fabulous event by calling 416.630.2222 or visit us at www.mukibaum.com. 17 Sensory Integration Sensory Integration (con't from page 1) atmosphere. The space at the Centre is especially designed to highlight this. There are beautiful large windows, most overlooking a wooded ravine and there are high ceilings and spacious rooms to move among. The centre is organized into activity rooms, which offer specific sensory inputs: •There is a tactile room that has many textures to explore. •a music room with many instruments, which help develop the auditory sensation as well as support expression and learning. •a proprioceptive room which promotes the organization of input of deep pressure and weight. •an art room for developing the visual sensory modality and for expression and skills building. •a Snoezelen room for the development of inner organization, calming and relaxation. •a spa for kinesthetic experience. •a kitchen for learning of tasks of daily living and for sharing food with peers; •a gym that offers opportunity for the enhancement of balance, proprioception, tactile, visual and auditory sensations. The gym is one of the most favorite rooms in the center, a room of discovery and integration of many sensations. The staff working in the program is wonderful. They have a deep understanding of the needs of the people we serve and know how to support their learning at a gentle, consistent pace. They are bright and creative and a real asset to the program. We are all learning at this centre! The people we serve are learning how to make ‘sense’ of the world, participate, and express themselves. Staff is learning how to customize the environment and the activities for people to be successful. As a result, we have already seen some fantastic changes. One man who felt overwhelmed by being in a room would Who is that?? We just want to thank all of you who responded to the ‘Who Is It?” Challenge. Here are some of the responses: “His name is Juliette and he managed to get a hole in one! But then he dove in after it and got stuck!” - Delia “It’s Frank Merlihan trying to do a hand stand. Failing that it’s Walt Disney’s Goofy playing golf with one hand.” - Ana “It’s Superman making a crash landing” - Heather “It is a parent of [one of the people we serve] and he is entertaining the people who are shooting at the hole by dancing for them.” - Jen CONGRATULATIONS TO ANA & JEN who each win a prize from the Realize Team. 18 spend his days in the hall. Now, he is able to enter the room, stay in it and participate successfully in the program. One woman who felt so anxious as a result of her sensory needs that she constantly searched for food asking again and again “When is lunchtime? Is it lunch yet?” and becoming aggressive when she had to wait, has become able to participate fully in the activities. Her anxiety has dropped; she became focused and able to learn and stopped her constant searching for food. Another woman who was fearful of any surface that challenged her balance was sitting on the platform swing last week pushing herself higher and higher! There are many little miracles and no doubt we will be privileged to witness many more. We will continue to share with you the wonderful work done at the centre and the results of the research conducted in it. Stay tuned for more exciting news! Congratulations to Nehama for her vision; to Kevin, Nupur and Jill for their leadership; to all the staff for sharing their talents and for their devotion and to the people we serve for their hard work and trust. Parents Column By Marian Mitchell I volunteered to write the first article for the Parents Column in Realize and I thought I should start by thanking all the staff from the Muki Baum Blue Spruce School [Toronto Region Children’s Day Program] because without their support I wouldn’t be able to write this article. Special Thanks to: Doug Amonite, Laura P., Salina Eldon and Andrew Hicks for their compassion and assistance. Let me fill you in on the important details that have brought my son Curtis and I to this part of our journey. Our story starts in the summer of 1998; Curtis was diagnosed with Pervasive Developmental Disorder (P.D.D), developmental delay, A.D.H.D and a host of other labels too numerous to mention. This news was devastating. All my hopes and dreams for a “perfect” child were completely crushed. I felt overwhelmed and alone as a single parent with a special needs child. Little did I know that I was just at the beginning of a horrible roller coaster ride that did not end until Curtis was accepted into Muki Baum two years ago. parent. I discovered that I was to become Curtis’s advocate and that I would have to fight to provide him with what I think is his inalienable right: to be treated as a valuable human being. When the “professionals” told me to institutionalize Curtis because he was aggressive and they couldn’t figure out any other way to understand him, I steadfastly refused. When the school and the day care centre wouldn’t accommodate Curtis, I removed him from the school system completely. We had fallen through the cracks and as far as I was concerned, nobody cared. With the assistance of my parents (I can’t even fathom managing without their continued support), Curtis and I moved back to Toronto. By this time, I had all but given up on any agency, professional or organization to assist my little family through difficult times. I was a nervous wreck. In the midst of all this, a small beacon of hope was starting to brighten the horizon but I couldn’t bring myself to look in that direction. I had applied for Curtis to attend Muki Baum but I didn’t want us to experience any more disappointment so I steeled myself for another rejection. We waited. Just before September 2001, Curtis was accepted into the Blue Spruce School. I rejoiced. Now, Curtis is half way through his second year and I am amazed at his progress. The small beacon became a bright light with the commitment and dedication of the staff at Muki Baum. Curtis and I are doing well; there is again hope for the future. Looking back on that time, I’m not sure how I managed to learn about various disorders, travel to many appointments with agencies and doctors and still try to be a good Thank you for being there for us. Be seen here! ‘Realize’ would like to offer you the opportunity to be seen by over 2500 readers on a quarterly basis. We provide businesses with a chance to get their name out there while supporting a unique and worthwhile cause. We provide advertising rates for every budget. For more information, contact Christine McLaughlin at 416.630.2222 or via email at [email protected] TO GET CALL NOW FF! 5 - 20% O 19 Final Thoughts A Message From the Editors Autumn of 2002 was a time filled with success and new beginnings. First we opened the brand new Sensory MotorTherapy Centre from which we have already seen unparalleled improvements in the people we serve. The Muki Baum Association is proud to have been a recipient of the North York Chamber of Commerce Business of the Year Award in the service sector. In this issue, we have added new and exciting features that we hope you will find informative and enjoyable. The additions include a new Parents Column, the Muki Pulse Corner, written by the people we serve, as well as selected staff profiles. As always your comments, suggestions and ideas are welcome and encouraged. [email protected], by calling 416.630.2222 or by fax at 416.630.2236. You can reach us at Sincerely, Christine, Mishi & Nancy The Editorial Team What’s Happening Jazzed! Golf Direct Mail We have begun planning JAZZED! for 2003. New committee members are still welcome. To get involved contact Christine at [email protected]. Reserve your spots now before we sell out! Look for more details in the next issue, contact Christine at 416.630.2222 or visit us at www.mukibaum.com. It’s not too late to get your Direct Mail responses in. Mail or contact Christine McLaughlin at 416.630.2222 ext.233. HELP US TO FIND YOU! 265 RIMROCK ROAD, SUITE 209 NORTH YORK, ONTARIO M3J 3C6 (416) 630-2222/FAX (416) 630-2236 WWW.MUKIBAUM.COM RETURN TO SENDER, POSTAGE GUARANTEED. Postage Paid Port payé Publications Mail Poste-publications 40018908 Have you recently moved? Should we send you a copy at another location? Is there a friend or colleague who would appreciate receiving our publication? HELP US SAVE MONEY! Did you receive duplicate copies of Realize? Sign up to receive e-mail notification of the newest issues which can be downloaded from www.mukibaum.com/publications.html We’ll let you know when the new issues are out and you can download them at your convenience, saving us postage fees! Let us know at [email protected]