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PA-TSA Newsletter
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PA Tourette Syndrome Alliance, Inc.
P.O. Box 148
McSherrystown, PA 17344
Phone: 1-800-990-3300
or 717-337-1134
Fax: 717-698-1420
www.patsainc.org
STAFF
Administrator/Consultant:
Sherrie Sponseller
Assistant Administrator/Consultant:
Sabrina Bosse
Volunteer Programs:
We Need You! Anyone can join our volunteer programs at any time. Recorded
trainings are available for most trainings and updates will be completed each summer.
To start the process, just let us know what program you are interested in by emailing
[email protected] or by completing a Volunteer Application online.

Volunteer Consultant — trained volunteers who can assist with IEP and other
school meetings.
 Speaker’s Bureau — trained volunteers who can provide trainings for
Educators, Peers and other Community Members.
 Youth Advocate Program — youth ages 12-25 who have trained and have
materials to do an information board, bulletin board and give a basic training on TS.
 Outreach/Information Program — knowledgeable volunteers who “staff” an
information booth at local events.
Outreach & Volunteer Coordinator:
Sara Woolf
Speakers
Bureau
Ilene Applebaum
Educator/business owner
Philadelphia & Montgomery
Jack Chambers
Retired Banker
Adams & York
YAP
Volunteer
Consultant
Aimee Denton
Demee Bakery Owner & Operator
Bucks & Montgomery
Lesley Geyer
Occupational Therapist
Berks, Chester, Delaware &
Montgomery
Janet Curren
Homemaker
Chester & Delaware
Rachel Lewis
Jay Geyer
Cheryl Malloy
Dept. of Navy
Southern PA
Therapeutic Support Staff
Cambria & surrounding counties
Lesley Geyer
Karen Wilder
Occupational Therapist
Berks, Chester, Montgomery &
Pocono Region
Rachel Lewis
Customer Service
Allegheny, Fayette, Washington, &
Westmoreland
Susan Lutz
Dental Hygienist
Berks & Schuylkill
Cheryl Malloy
Therapeutic Support Staff
Cambria & surrounding counties
Barbara Rushak
Retired Educator
Allegheny, Washington, & western pa
Karen Wilder
Counseling/Human Relations
Chester, Delaware & Montgomery
Customer Service
Allegheny, Fayette, Washington, &
Westmoreland
Counseling/Human Relations
Chester, Delaware & Montgomery
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Youth Advocate Program
YAP Director
Jay Geyer
YAP Committee
Lindsay Glass
Izaiah Bosse
York & Adams
Xandra Corso
Warren, McKean & Elk
Sydney Esquivel
Adams & York
Kristen Harvey
Fayette
Kylie Horton
Blair
Martin Hurston
Lancaster
Rebecca Kramer
Centre/ Central PA
TJ LePera
Montgomery
Magnus Lewis
Westmoreland/Western PA
Susanna Roode
Montgomery & Bucks
And other members not listed
Disclaimer
This newsletter is published two times a year. Opinions expressed in this publication reflect the
views of its editor and contributors. They are not necessarily the views of the PA Tourette Syndrome
Alliance (PA-TSA).
While we will attempt to respond to all mail, we are not able to answer medical questions.
The PA-TSA, Inc. does not endorse products, services or manufacturers. Such names appear only as
information for our members. PA-TSA assumes no liability whatsoever for information about the
use of any product or service mentioned.
Support group leaders and individual volunteers who have agreed to accept telephone calls
concerning Tourette Syndrome are knowledgeable about TS. However, their comments reflect their
personal background with TS and do not necessarily reflect the views of the PA Tourette Syndrome
Alliance.
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Held the weekend of June 6-8, 2014!
Thanks to the following
sponsors:
Highmark Walk teams & walkers
West Manheim Twp Lions Club
Fraternal Order of Eagles
*Littlestown Aerie 2226
*Hanover Aerie 1406
*Carlisle Aerie 1299
Lowther Manor Lodge No. 781
Valley Grange #1360
Thomas Walter
Christine Loveland
Quinn Flags
Thomas R Hummel
Susan Millheim
Mr & Mrs Eugene R Cathcart
Steve & Jeri Ritchey
Sarah & Tim Barshinger
Andy Conrad
Shirley McMonagle
Mickel D & Mary Ann Campbell
Phyllis Sisco
John Denora
Scott Himmelberger
Ilene Applebaum
Clara Zalakar
Allen E & Carol A Eustace
Alan & Rebecca Fralin
Thank You for supporting
our Camp Programs!
To support the 2015 Camp or to
donate scholarship funds,
contact [email protected]
Held the weekend of October 12-13, 2014!
Thanks to the following
sponsors:
Carnegie-Collier
Rotary
VFW Post 7530
Lowther Manor Masonic Lodge
Rock It Pizza, Etters, PA
Fraternal Order of Eagles #2399
Monessen Elks Lodge #773
Thank You !
This amazing event would not be
possible without our sponsors!
Snack donors:
Patricia John, Associate Vice
President & Financial Advisor
Utz Quality Foods
Martins
Karns Food
Got a great picture of someone with Tourette
Syndrome? Want to help spread awareness and
show that people with TS are fun, active and
fantastic? Send in your picture to add to our
“Faces of Tourette” awareness video!
To support the 2015 Retreat or to
donate scholarship funds,
contact [email protected]
Cut out and send this information along with your picture to PATSA at P.O. Box 148, McSherrystown, PA 17344 or by email to
[email protected].
Name(s): _______________________________________
County: ________________________________________
(By submitting this photo, I agree that I have full rights to the photo
We use the video on our Facebook page,
and grant PA-TSA full permission to use the photo in their “Faces
YouTube channel and to show Local Legislators of Tourette” awareness video.)
that people with TS are just like everyone else!! Signed: ___________________________________________
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What’s that Acronym?
Here is a list of handy acronyms that may just help you as you read
that Individualized Education Program (IEP), talk with your child’s
teachers or research information to help your child succeed!
ABA
ADA
ADR
ADD/AD/HD
AHEAD
AP
AP; APD
AS
ASD
AT
BIP; BMP
CAP; CAPD
CAST
CBA
CEC
CFR
CHADD
COPAA
CST
DCD
DD
EBD
ELC
ES
ESY
ETS
FAPE
FERPA
FSP
GATE
GE
GED
G/IEP
GPA
GT/LD
IDD
IDEA
IEE
IEP
IEPT
ITP
IQ
K-12
LEA
Applied Behavior Analysis
Americans with Disabilities Act
Alternative Dispute Resolution
Attention-Deficit Disorder/ AttentionDeficit/Hyperactivity Disorder
Association on Higher Education and
Disabilities
Advanced Placement
Auditory Processing Disorder
Asperger's Syndrome
Autism Spectrum Disorder
Assistive Technology
Behavior Intervention Plan; Behavior
Management Plan
Central Auditory Processing Disorder
Center for Applied Special Technology
Curriculum-Based Assessment
Council for Exceptional Children
Code of Federal Regulations
Children and Adults with AttentionDeficit/Hyperactivity Disorder
The Council of Parent Attorneys and
Advocates
Child Study Team
Developmental Coordination Disorder
Developmentally Disabled; Develop
mentally Delayed
Emotional and Behavioral Disorders
Education Law Center
Emotional Support Classroom
Extended School Year Services
Educational Testing Service
Free Appropriate Public Education
Family Educational Rights and Privacy
Act
Family Support Plan
Gifted and Talented Education
General Education
General Education Diploma
Gifted Individualized Educational Plan
Grade Point Average
Gifted & Talented with Learning Disabilities
Intellectual/Developmental Disability
Individuals with Disabilities Education
Act
Independent Educational Evaluation
Individualized Education Program
Individualized Education Program Team
Individual Transition Plan
Intelligence Quotient
Kindergarten through 12th Grade
Local Education Agency
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LD
LDA
LRE
LS
LSS
MBD
MDT
MH
NCLB
NCLD
NICHCY
NICHD
NILD
NIMH
NLD;NVLD
OCD
OCR
ODD
OHI
OSEP
OT
PAC
PACER
PDD
PEAL
PSAT
PT
RSP
SAT
SD
SI
SLD
SLP
SMT
SP/Lang, SP/LG
SPED
SSI
SST
V/V
WIAT
WISC; III or IV
WJ; III or 4
4
Learning Disability
Learning Disability Association
Least Restrictive Environment
Learning Support Classroom
Life Skills Support Classroom
Minimal Brain Dysfunction
Multidisciplinary Team
Multiply Handicapped
No Child Left Behind Act of 2001
National Center for Learning Disabilities
National Dissemination Center for Children with Disabilities
National Institute for Child Health and
Human Development
National Institute for Learning Disabilities
National Institutes of Mental Health
Nonverbal Learning Disability
Obsessive-Compulsive Disorder
Office for Civil Rights
Oppositional Defiant Disorder
Other Health Impaired
Office of Special Education Programs
Occupational Therapist; Occupational
Therapy
Parent Advisory Committee
Parent Advocacy Coalition for Educational Rights
Pervasive Developmental Disorder
Parent Education and Learning
Preliminary Scholastic Aptitude Test
Physical Therapist; Physical Therapy
Resource Specialist Program
Scholastic Aptitude Test
School District
Sensory Integration
Specific Learning Disability
Speech and Language Program
Simultaneous Multisensory Teaching
Speech and Language
Special Education
Supplemental Security Income
Student Study Team
Verbalization/Visualization
Wechsler Individual Achievement Test
Wechsler Intelligence Scale for Children
Woodcock Johnson Psychoeducational
Battery
Remember — if your school mentions an acronym that
you are not familiar with — just ask!! Every job has it’s
own jargon that not everyone understands!
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The following school districts and communities have received FREE
trainings on Tourette Syndrome from PA-TSA July 1– December 31, 2014!
Educators In-Service Trainings:
Tulpehocken Area SD, Berks County
Gateway SD, Allegheny County
Lititz Mennonite, Lancaster County
Upper Merion SD, Montgomery County
Cumberland Schools, Cumberland County
Spectrum Charter School, Allegheny Co.
Frazier SD, Fayette County
Souderton Area SD, Montgomery County
Pine Grove SD, Schulkill County
Sunrise School, Allegheny County
Pocono Mountain SD, Monroe County (2)
West Chester SD, Chester County
Owen J. Roberts SD, Montgomery County
Lewisburg SD, Union County
Chartiers Valley SD, Allegheny County
Peer In-Service Trainings:
Centennial SD, Bucks County (2)
Owen J. Roberts SD, Montgomery County
Saucon Valley SD, Northampton County
Dallastown SD, York County (2)
Bethlehem Center SD, Washington County
Shippensburg Area SD, Franklin County
Medical Related Trainings:
York College Nurses, York County Central Region School Nurses, Clinton County
Northeast Region School Nurses, Lackawanna Co. True North Behavioral Health, York/Adams Counties
Community Training:
Charties-Carnegie Rotary, Allegheny County
2015 Marks PA-TSA’s 30th Anniversary!
To nominate someone, fill out the nomination form
below and mail it to PA-TSA, P.O. Box 148,
McSherrystown, PA 17344, Attn: Sara Woolf.
Our Public Relations and Camp Committee Members
are busy planning a 30th Anniversary Banquet for the
Or, go to www.patsainc.org to fill out the confidential
first evening of TS Family Camp. This banquet will
online survey and read a full description of each
be held Friday, June 12 and we need your help in
award.
nominating people to receive our awards!
On our 25th Anniversary, we established several
awards that were named in honor of several
important historical members of our organization.
These five-year awards are:
Mary Lou Reaver Advocate Award
Sid Newman Fundraiser Award
Dr. Cadman Donor Award
Dr. Peter Meyer Professional Award
Senator Terry Punt Legislative Award
Accommodating School Award
Outstanding Volunteer Award
Nominations will be accepted until April 12, 2015.
If your nominee is selected, we will be in touch with
you for follow-up and for more information.
--------------------------------------I nominate
for the following award:
My contact information is:
Name:
Phone:
Email:
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Donations In Loving Memory:
Jeanette Boguslaw
Thomas Daley
Joseph Levstek
Mary Ann Lepera
April D'Orazio
Carole Trebich
Kathleen Winters
Maryann Lindsay
Mr. & Mrs. Louis Alba
George & Jane Doan
Angela Lepera
Tube Methods C/O Matt Mankus
Lesley & John Geyer
Hilda Daniel, PC
Carol Rohl
Susan Millheim
Brad Michel
Joseph & Juanita Zumack
Ryan Nocero
Joanne Franzoni
Mr. & Mrs John Muntz
Peter & Adriane De Moerloose
Helen Strony
Lou Pilch
Donations In Honor:
Austin & Mitch
Scott Muir
Jay Geyer
Jack & Lesley Geyer
Jeff Kiely
CC & SP Cherok
Jude Denton
Kellyann Rogers
Meressa Hooper
Lisa, Richard & David LearnerWagner
My Life, My Story,
My Tourette's!
Peter Giunta
Nicholas Dellorso
Edward J & Diana M Dellorso
Rob Sukaly
Michelle Stranix
Steven Hill
Thomas Walter
The Lewis Family
Teresa Yancik
The Wilder Family
Stephen Blumenthal
William Turk
Clara Zalakar
Support Groups: We have local support groups in several areas of the Commonwealth, along with an
online support group that is available 24/7! If you are interested in starting a support group in your area,
please contact our Outreach & Volunteer Coordinator – Sara Woolf at [email protected].
Pen Pals: Contact the office (1-800-990-3300 or [email protected]) to be added to our Pen Pals list! We
can then run you a list of others within 2 - 3 years of your age who you can contact for support!
To connect with these programs or to request the support of a Consultant,
visit our website at www. PATSAInc.org and
click on Programs/Services for Individuals & Families.
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PA-TSA has replaced Yearly Membership with a Lifetime Membership
option!! Join for the low price of $100 and one family member (over the
age of 18) will enjoy membership for their lifetime!! This includes:
newsletters, consultation, information & referral, 10% discount on TS
Family Camp & Retreat, privilege of voting for Board Members and a
plastic Membership Card!! Parents, get your name on the Membership
Card so your family can access all of our supports while your child is young
and then give them the gift of Lifetime Membership when they turn 18!!
5K and 1-Mile
Fun Run
Held
November 1,
2014,
raised over
$5,000!
Get your
card NOW!
Davis Family—for Luke
Van Ruler Family—for Tristan
Sheri Newmark
Christa Barfield—for Micah
Heidi Ruprecht—for Megan
Chester County Running Store
Positive Paws Pet Service, LLC
Gavin Doyle
The Millheim’s
Lesley Geyer
Doyle Family from Stephanie DerOhannessian

May 6 -- TS Awareness Day at the Capitol

May 15- June 15 -- TS Awareness Month

May 16 -- Highmark Walk for a Healthy Community in
Harrisburg and Pittsburgh (Registration starts 2/2)

June 12 -- PA-TSA's 30th Anniversary Banquet

June 12-14 -- TS Family Camp (Registration starts 2/27)
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Board of
Directors
President
Melinda Platt
Inventory Specialist
Adams County
Vice-President
Lesley Geyer
Occupational Therapist
Luzerne County
Secretary
Jay Geyer
Department of the Navy
Virginia
Treasurer
OPEN
Members
Dr. Leo Burke, Psy.D.
Psychologist
Philadelphia
Jeanine Davis
Account & Marketing Manager
Bucks County
Joyce Eisenhauer
Homemaker
Cumberland County
Lindsay Glass
Student
Lehigh County
Lori Grimes-Harvey
Human Services Director
Fayette County
Rachel Lewis
Customer Service Coordinator
Westmoreland County
Christina MacLean
Procedure Writer
York County
Medical Advisory Board
Lawrence W. Brown, M.D.
Associate Professor of Neurology
Philadelphia
Peter Meyer, M.D.
Pediatric Neuro Psychiatrist
Montgomery County
Acknowledgement of Thanks
PERSONAL AND CORPORATE BENEFACTORS over $200
F.O.F. Golf Association c/o Kathy Payette
Jeffrey C & Nancy C Dore
Jay Geyer
John & Lesley Geyer
Becky Nuttall
Linda Pera
James & Mary Lou Reaver
Donald F & Susan Volk
GRANTS
Brad Cohen Tourette Foundation
Community Aid, Inc.
PA Department of Health
CLUBS & LODGES
Fraternal Order of Eagles 2226
Lowther Manor Lodge No. 781
Fraternal Order of Eagles Hanover Aerie 1406
VFW Home Association Post 15
Carnegie-Collier Rotary Club
Fraternal Order of Eagles 2226
Wellsboro Moose- Lodge #1147
Your generosity is greatly appreciated!
(If we have missed anyone, please contact PA-TSA and your name will be mentioned in our next newsletter.)
This Newsletter was made possible through
a grant provided by:
Mission Statement
The PA Tourette Syndrome Alliance is a non-profit organization that promotes
awareness and acceptance, provides education, and assists families, schools and
communities while advocating for individuals with TS.