NEWSLETTER - Support for Families of Children with Disabilities

Transcription

SUPPORT FOR FAMILIES
OF CHILDREN WITH DISABILITIES
NEWSLETTER
SUMMER 2016
Save the Date!
Table of Contents
Wine+Design Save the Date/ 1
Information & Resource
Conference Another Success
The Benefit of Parent
Involvement: What
Research Has to Say
2
Are you Ready? Preparing
for Emergencies: Tips
for Families
3
CCS Advocates Release
A Redesign Principles
Document
4
Pull-Out Section:
Our Services & Events
Friday, September 30, 2016 │ 6:00 pm – 10:00 pm
The Galleria, San Francisco Design Center
a fundraiser benefit for
Join us for a great party for a great cause!
5-8
What is Inclusion?
9
Access to
Adventure 2016/
2015 Annual Report
10
Thank You!/
Seeking Board Members
11
SFCD Board & Staff
12
Individual reservations: $150/person
Sponsorship packages start at $500
For more information, contact:
Kenneth McElderry: 415-282-7494 x132; [email protected]
Or visit www.supportforfamilies.org for updates!
2016 Information & Resource Conference Another Success!
Support for Families of Children
with Disabilities is a nonprofit
support, resource, and networking
organization for families of children
with disabilities, concerns, and
special health care needs and the
professionals who work with them.
All services are free of charge
including resources, phone-line,
drop-in center, support groups,
workshops & family gatherings.
Over 500 people participated in our Information & Resource Conference on
March 5th at John O'Connell High School. Over 300 parents, professionals, and
community members attended 24 morning and afternoon workshops, visited
75 organizations in the exhibitor hall, gathered resources, and listened to
keynote speaker Dr. Mary Bacon, Ph.D. For photos and select presentation slides,
visit www.supportforfamilies.org/resourcefair.
SUMMER 2016
SUPPORT FOR FAMILIES NEWSLETTER
Education
The Benefits of Parent
Involvement: What Research Has
to Say
Excerpt from Home-School Relations: Working Successfully with
Parents and Families, by G. Olsen, M.L. Fuller, 2008 edition, p. 129130
For more information about this article, contact Joe Goyos,
Education Programs Director: [email protected]
Researchers have evidence for the positive effects of parent
involvement on children, families, and school when schools
and parents continuously support and encourage the children's
learning and development (Eccles & Harold, 1993; Illinois State
Board of Education, 1993). According to Henderson and Berla
(1994), "the most accurate predictor of a student's achievement
in school is not income or social status but the extent to which
that student's family is able to:
1. Create a home environment that encourages
learning
2. Express high (but not unrealistic) expectations for
their children's achievement and future careers
3. Become involved in their children's education at
school and in the community (p. 160)
Henderson and Berla (1994) reviewed and analyzed eighty-five
studies that documented the comprehensive benefits of parent
involvement in children's education. This and other studies show
that parent involvement activities that are effectively planned
and well implemented result in substantial benefits to children,
parents, educators, and the school.
Benefits for the Children
• Children tend to achieve more, regardless of ethnic or
racial background, socioeconomic status, or parents'
education level.
• Children generally achieve better grades, test scores, and
attendance.
• Children consistently complete their homework.
• Children have better self-esteem, are more selfdisciplined, and show higher aspirations and motivation
toward school.
• Children's positive attitude about school often results
in improved behavior in school and less suspension for
disciplinary reasons.
• Fewer children are being placed in special education and
remedial classes.
• Children from diverse cultural backgrounds tend to do
better when parents and professionals work together
to bridge the gap between the culture at home and the
culture in school.
•
Junior high and high school students whose parents
remain involved usually make better transitions and are
less likely to drop out of school.
Benefits for the Parents
• Parents increase their interaction and discussion with
their children and are more responsive and sensitive
to their children's social, emotional, and intellectual
developmental needs.
• Parents are more confident in their parenting and
decision-making skills.
• As parents gain more knowledge of child development,
there is more use of affection and positive reinforcement
and less punishment on their children.
• Parents have a better understanding of the teacher's job
and school curriculum.
• When parents are aware of what their children are
learning, they are more likely to help when they are
requested by teachers to become more involved in their
children's learning activities at home.
• Parents' perceptions of the school are improved and there
are stronger ties and commitment to the school.
• Parents are more aware of, and become more active
regarding, policies that affect their children's education
when parents are requested by school to be part of the
decision-making team.
Benefits for the Educators
• When schools have a high percentage of involved parents
in and out of schools, teachers and principals are more
likely to experience higher morale.
• Teachers and principals often earn greater respect for
their profession from the parents.
• Consistent parent involvement leads to improved
communication and relations between parents, teachers,
and administrators.
• Teachers and principals acquire a better understanding
of families' cultures and diversity, and they form deeper
respect for parents' abilities and time.
• Teachers and principals report an increase in job
satisfaction.
Benefits for the School
• Schools that actively involve parents and the community
tend to establish better reputations in the community.
• Schools also experience better community support.
• School programs that encourage and involve parents
usually do better and have higher quality programs than
programs that do not involve parents.
1663 Mission Street, 7th Floor, San Francisco, CA 94103 •(415) 282-7494 • [email protected] • www.supportforfamilies.org
SUMMER 2016
Are You Ready? Preparing for
Emergencies: Tips for Families
Natural disasters and emergencies – like tornados, floods,
hurricanes and other storms – can happen anywhere, at
any time. We can’t prevent these disasters, but we can get
ready for them. And we can help our children be prepared
for them, too. YOU know what your family needs. You are the
best person to help your family if a disaster happens. Don’t
wait until disaster strikes – take steps now to prepare!
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Create a Personal Preparedness Plan for your
child to share with caregivers and schools. An
example of such a plan can be found here:
http://www.supportforfamilies.org/pdf%20files/
EmergencyBook.pdf
Learn
about
Emergency
Alerts
https://www.fema.gov/emergency-alert-system.
at
3. BUILD a KIT
Daily routine items – medicines, tooth brush.
Include items that can calm your child during a
disaster, such as sensory needs, toys, books, etc.
Water and a 3-day supply of non-perishable food
1. BE INFORMED
Think about potential situations that may affect your family:
natural disasters, fires, power outages, pandemics, terrorism.
Talk to your child’s pediatrician about your child’s
needs in a disaster or emergency.
Talk with family members, friends, and neighbors
about their experiences in your community.
Ask your child’s doctor about storing medicine for an
emergency or how to get prescriptions filled during
an emergency.
2. MAKE a PLAN
Talk with your family about what can happen in
disasters.
Learn about emergency alerts and warnings in
your community.
Create a paper list of important contact information
– family members, doctors, hospitals, local schools
– include phone numbers, email addresses, and physical addresses.
Identify a go-to contact for family members to
connect with in case you become separated.
Create a personal support network of people who
know your child and have agreed to help during a
disaster: family members, close friends, neighbors,
your child’s caregiver or teacher, pediatrician, etc.
Talk to your child’s school or child care facility
about their plans.
Consider an identification badge, bracelet, or card
for your child.
Contact your local first responders ahead of time if
your child has a medical condition that requires their
services.
Battery-powered radio, fliashlight, cellphone & extra batteries
First aid kit
Copies of important documents such as medical
records, bank accounts info, etc.
You don’t have to have everything in this kit right
away. Start with the things you have on hand, and add
new items to the kit over time.
4. GET INVOLVED
Visit your local fire station and police department
so your child can meet “disaster helpers.”
Volunteer to help your community prepare.
During a disaster, help others by donating needed
goods or services.
Keep in mind that a trained and informed public can
help keep communities safe.
RESOURCES
Family Voices of CA - California's Family-to-Family
Health Information Center (F2F):
www.familyvoicesofca.org
Ready.gov (Homeland Security) - Individuals with
Disabilities and Others with Access and Functional
Needs:
www.ready.gov/individuals-access-functional-needs
American Academy of Pediatrics - Emergency
Information Form for Children with Special Needs:
www2.aap.org/advocacy/blankform.pdf
FEMA & American Red Cross - Preparing for Disaster
for People with Disabilities and other Special Needs:
www.redcross.org/images/MEDIA_CustomProductCatalog/m4240199_A4497.pdf
MY LOCAL RED CROSS NUMBER: 415-427-8000
MY LOCAL EMA NUMBER: 510-286-0895
SUMMER 2016
FVCA
California Children’s Services
Advocates Release A Redesign
Principles Document With
Recommendations For The
Department Of Health Care
Services
by Sara Godley Family Voices of CA (FVCA) Communications
Manager - [email protected]
Approximately 200,000 children and youth with special health
care needs (CYSHCN) in California are served by California
Children’s Services (CCS), one of the oldest public health
systems in the country. CCS has many critically important
components that have driven excellent health outcomes
for medically complex and fragile children, including lowincome children and children without legal documentation.
Last year, the Department of Health Care Services (DHCS)
announced that they would start their “Whole-Child” model
in specific counties no earlier than January 2017. In the first
phase of this approach, nearly 20% of CYSHCN in the CCS
program will be moved to managed care. CCS advocates and
parents are concerned that by switching to managed care
their children would lose access to the specialty providers
that know them so well.
A statewide network of CCS advocates created a redesign
principles document outlining recommendations regarding
how the next steps of the CCS redesign process should
specifically address family partnerships, program standards,
continuity of care, monitoring, and rates. This document was
submitted to the DHCS and we hope its contents will assist
you as you think about and advocate for improved services
for CYSHCN.
The document can be found here:
www.supportforfamilies.org/pdf%20files/CCSPrinciples.
pdf
We encourage you to read the whole document, but we’ve
also summarized four of the document’s key points here:
ROBUST YOUTH AND FAMILY REPRESENTATION SHOULD BE
REQUIRED
Family members, caregivers, and CYSHCN should be engaged
to partner in meaningful decision-making at all levels. A
family advisory board on the CCS “Whole-Child” Model should
be established, and each managed care plan should also
have a family advisory group. To support their participation
in these groups, families and youth must receive training,
reimbursements, and child care. Plans should be required to
establish relationships with Family Resource Centers/Family
Empowerment Centers/Parent Training and Information
Centers so they can provide the ongoing information,
education, and support that families and youth need to
participate as true partners.
CONTINUITY OF CARE SHOULD BE FOR THE LENGTH OF THE
CHILD'S CCS CONDITION OR 12 MONTHS, WHICHEVER IS
GREATER
Many CCS conditions are lifelong. Children may be dependent
on drugs or medical devices to function and thrive. These
children should not be required to switch treatments
arbitrarily at the end of twelve months. This standard is
consistent within the current CCS program when children
move from one county to another.
LEGISLATIVE PROCESS SHOULD BE FOLLOWED
The CCS program serves California’s most medically
vulnerable children; as such, it is essential that any redesign
proposals are thoroughly vetted by the appropriate legislative
policy committees. Attempting to redesign the CCS program
in budget trailer bill language, or by simply allowing the
existing carve-out to expire, does not allow adequate time
for scrutiny of all of the implications of the proposal.
CCS STANDARDS SHOULD BE MAINTAINED IN ALL
COUNTRIES, WHETHER CCS IS CARVED IN OR OUT OF
MANAGED CARE
CCS standards should be maintained in all counties whether
CCS is carved in or out of managed care. Program and provider
participation standards should remain the responsibility of
the state CCS program and be enforced and applied equally.
Existing CCS credentialing and utilization standards should
not be weakened in any way. Treatment decisions should
be based on CCS guidelines, and if such guidelines do not
exist, should be based on the clinical practice guidelines or
protocols of the relevant pediatric specialty society.
For more information on how to get involved on this issue, contact
Pip Marks, FVCA Manager, at [email protected]
SUMMER 2016
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SUPPORT FOR FAMILIES OF CHILDREN WITH DISABILITIES
Providing services for families and professionals of children with disabilities
Our Services
CALL US:
415-920-5040
EMAIL US:
[email protected]
FAX US:
415-282-1226
VISIT US:
1663 Mission Street
7th Floor
San Francisco, CA 94103
HOURS:
Monday, Wednesday, Friday
9:30am-4:30pm
Tuesday, Thursday
12:30pm - 8:30pm
GO TO OUR WEBSITE:
www.supportforfamilies.org
to get the latest information
on workshops, events and
new resources.
FIND US ON:
facebook.com/
supportforfamiliessf
twitter.com/supportforfams
Phoneline/Drop-in Center
Get individualized
information, referrals, and
answers to all your questions
from Support for Families
staff, who are parents
themselves. Staff will follow
up to make sure you get
the answers you need. Staff
speak English, Spanish,
and Cantonese. Caregiving
for children available 4:308:30 p.m. Tuesdays and
Thursdays.
Resource Library
Access more than 3,500
books, DVDs, and a toy
lending collection for families
and professionals in our
onsite library. Visit the library
catalog online at:
www.supportforfamilies.
org/library.html. On-site
computer access and
assistance is also available.
The library is open during
drop-in center hours and
during on-site workshops
and special events.
Support Groups
Come to a support group to
find solutions to challenges,
learn advocacy skills, and
explore resources. Support
groups provide a network
for families to gain strength
by sharing experiences with
peers.
Volunteer Parent Mentors
Find a match with a trained
volunteer Parent Mentor
based on a shared issue,
condition and or situation.
Educational Workshops
and Clinics
Learn about resources,
rights, and responsibilities in
monthly parent/professional
workshops and weekly smallgroup clinics. Care giving for
children and interpretation
services are available with
advance reservation for
clinics and workshops.
Case Management
Get professional consultation
from social workers.
Family Special Events
Socialize and network in a
fun relaxed atmosphere at
quarterly events, such as our
annual ice-skating party and
Halloween party.
Newsletter
Read the quarterly
newsletter in English,
Spanish, or Chinese to find
articles of interest to families
and professionals.
How You Can Help
All services and events,
even childcare, are
always free of charge
to encourage participation by all families. With
the demand for services
greater than ever, your
donations help make this
possible. A gift to Support
for Families means that
families of children with
special needs will be
better prepared to help
their children—and that
more children with
disabilities will live their
lives with dignity and
opportunity.
Send a check to the
address below or give
online at
www.supportforfamilies.
org/help.html. Every gift
can help make a difference in the life of a child
with special needs.
MISSION STATEMENT
The purpose of Support for
Families is to ensure that
families of children with any
kind of disability or special
health care need have the
knowledge and support to
make informed choices that
enhance their children’s
development and well being.
Through fostering partnership
among families, professionals and the community, our
children can flourish.
BOARD OF DIRECTORS
Chris Dehner, President
Laura Lanzone, Vice President
Goli Mahdavi, Secretary
Diego Valderrama, Treasurer
Jake Block
Eileen Boussina
Heather Fischer
David Fazio
Jane LaPides
Jessica Litwin
Laurie Strawn
EXECUTIVE DIRECTOR
Juno Duenas
INSIDE
Support Groups
6
Clinics and ParentProfessional Workshops
7
Calendar of Events
8
Parent Mentor Program/
Job Opportunities
8
SUMMER 2016
Support Groups
All support groups are free of charge. Groups are located at Support for Families unless otherwise indicated.
Childcare can be provided unless otherwise indicated but MUST be reserved in advance. If you are interested in participating in any of these groups, or if you are interested in a specific issue, call (415) 920-5040 or e-mail us at info@
supportforfamilies.org for more information. We have staff who speak English, Spanish, and Cantonese.
PARENT SUPPORT GROUPS
Autism Support Group
Meets 4th Tuesday of the month,
6:30pm - 8:15pm.
Cantonese-Speaking Parents
Support Group
Meets 2nd Saturday of the month,
1:00pm - 3:00pm.
Chinatown Child Development
Center (CCDC) Group
For Cantonese-speaking families of
children with special needs. Meets at
the CCDC on the 3rd Monday of the
month, 9:30am - 12:00pm.
Living with Loss: Loss, Hope and
Healing
A group for parents/caretakers of
medically fragile children and children
facing life threatening illness.
Call 415-920-5040 for information.
Prader-Willi Group
Meets quarterly on Saturdays.
Call 415-920-5040 for more informatoin.
Spanish-Speaking Autism Parent
Support Group
Meets 3rd Tuesday of the month,
6:30pm - 8:15pm.
Spanish-Speaking Down Syndrome
Parent Support Group
Meets 1st Tuesday of the month,
6:00pm - 8:00pm.
Spanish-Speaking Parent Support
Group
Meets 2nd Wednesday of the month,
10:00am - 12:00pm.
Parents of Transition Age Youth
Join us for information, resources and
support for the issues we and our youth
face as they reach adulthood. Meets 1st
Tuesday of the month, 6:15pm - 8:15pm.
(No meeting July or August.)
GROUPS FOR YOUTH
Conversation Club for AAC Users
Meets at the Noe Valley Public Library
Meeting Room every Monday of the
month, 4:30pm - 5:30pm.
Young AAC Kids Conversation Club
One Saturday of the month, 11:30am 12:120pm. Call 415-920-5040 for more
information.
"Sibshop" Sibling Group
A recreational group for siblings of
children with disabilities or special
health care needs to have fun and share
experiences. Meets 3rd Saturday of the
month from 10:00am - 1:00pm; call 415920-5040 for more information.
Tuesday Night Group
A group for parents who have children
with disabilities or special health care
needs. Meets 1st and 3rd Tuesdays of
the month, 6:45pm - 8:30pm.
UCSF Inpatient Parent Support Group
Meets Thursdays, 4:00pm - 5:30pm.
Support for Families is Getting a
New Website!
Do you have suggestions about how we can
improve our online services?
Stay tuned for a survey on the homepage of our
website and give us your input!
SUMMER 2016
7
Clinics and Parent-Professional Workshops (PPWs)
Workshops and Clinics are FREE and held at Support for
Families (SFCD), 1663 Mission St., 7th Floor, San Francisco (between Duboce St. and S. Van Ness Ave.).
Pre-registration is required. To attend, reserve childcare and/or interpretation services, you must register at
least one week in advance by calling 415-920-5040 or
emailing [email protected].
WORKSHOPS
Book Talk: Author Eve Megargel
Tuesday, June 21st; 6:30pm - 8:00pm
Learning to Kiss is an unflinching and triumphant portrait of a
nonverbal young man on the autism spectrum who responds
to his litany of medical issues with courage and determination
to communicate.
Skills for Effective Parent Advocacy
Thursday, June 30th; 4:00pm - 6:00pm
Skills for Effective Parent Advocacy is a training that helps
parents build their advocacy skills to support their children in a
non-adversarial manner. We discuss the importance of building
communication with professionals and being able problem
solve in a variety of situations. The workshop will also cover
letter writing tips, email tips, documentation strategies as well
as some pointers for in person communication.
Parent Professional Workshop: 7 Steps to Special Needs Peace
of Mind
Saturday, August 13; 8:30am - 12:30pm
Realistic and achievable steps so you can worry less about your
child’s care and future.
Be prepared: This is NOT your normal special needs workshop.
Fast, informative, and fun – we guarantee that the 7 Steps
Workshop will be unlike anything you’ve ever heard before. We’re
simply going to turn your traditional special needs planning
notions on their head. Presenter: Michael Pearce, Special Needs
Attorney
IEP Development & Dynamics: How to Make Sure Your Voice
is Heard
Saturday, September 10; 8:30am - 12:30pm
The purpose of this training is to provide parents and professionals
with the information needed to advocate for the special education
programs and services for their children with disabilities or the
children they serve through the Individual Education Program
(IEP) process. Training topics will include: basic special education
rights, referral procedures for special education assessment
including the SST process, and parent rights in the IEP process with
a special list of helpful IEP and advocacy hints outlining effective
advocacy techniques. Presenter: Joe Feldman
Digging for Gold! How to Find Hidden Assets to
Employment in Youth and Children with Disabilities!
A workshop for disability employment staff, parents, and
others
Thursday, Septmber 29, 2015; 9:00am - 12:00pm
Many times we focus on the disability of the young person
and miss opportunities to point out their hidden assets to
employment. Young people with disabilities themselves often feel
like they have nothing going for them and that certainly they will
not be able to become employed. Hidden assets can be found
in interests, abilities, beliefs, values, in the disability and in other
parts of the young person's life. In young children connecting
their positive attributes to the world of work can be an incredibly
powerful way to open the conversation about employment in an
age appropriate way. The Digging for Gold Process transforms the
focus on limitations and shifts it to a focus on vocational ability
and potential! Do not miss this training if you want to build the
belief in employability and having a place in the labor market!
Presenter: Larry Robbin
CLINICS
For dates/times of clinics, see Calendar of Events on back page.
Individualized Education Program (IEP)
Presented by SFCD. Offered in English, Spanish, and Cantonese.
Learn about Special Education law, the IEP process, what to do
when things aren’t working, and how to become a more active
and effective team member.
iPads for Communication
Presented by SFCD. Offered in English, Spanish, and Cantonese.
Learn about using the iPad as an Augmentative and Alternative
Communication (AAC) Device. iPad operation and features will be
covered, as well as communication apps and how AAC devices
and services fit into the IEP process. Afterward, you may be able
to borrow an iPad from our lending library.
Transition to Adult Services
Presented by SFCD. Learn about special education transition
services for children age 16 and over, and how to effectively
participate in the development of your child’s transition plan.
SUMMER 2016
Calendar of Events
June
Jun 1 iPad Clinic- Spanish
Jun 2 iPad Clinic - English
Jun 2 IEP Clinic- Cantonese
Jun 9 IEP Clinic- English
Jun 11 PMP - Parent to Parent
Jun 11 PPW - CANCELLED
Jun 15 iPad Clinic - Spanish
Jun16 IEP Clinic- Spanish
Jun 18 iPad Clinic - Cantonese
Jun 18 iPad Clinic - English
Jul 28 Transition to Adult Svcs CANCELLED CANCELLED
10:00am - 12:00pm
4:00pm - 6:00pm
6:00pm - 8:00pm
4:00pm - 6:00pm
8:30am-4:30pm
CANCELLED
5:30pm - 7:30pm
4:00pm - 6:00pm
9:00am - 11:00pm
1:00pm - 3:00pm
Jun 21 Book Talk: Author Eve Megargel 6:30pm - 8:00pm
Jun 23 Transition to Adult Services
4:00pm - 6:00pm
Jun 23 CAC Meeting
6:30pm - 8:00pm
Jun 30 Skills for Effective Parent Advocacy 4:00pm - 6:00pm
July
Jul 7 IEP Clinic - Cantonese CANCELLED CANCELLED
Jul 14 IEP Clinic - English CANCELLED CANCELLED
Jul 21 IEP Clinic - Spanish CANCELLED CANCELLED
Aug
Aug 4 IEP Clinic - Cantonese
6:00pm - 8:00pm
Aug 11 IEP Clinic- English
4:00pm - 6:00pm
PPW - 7 Steps to Special Needs
Aug 13 Peace of Mind
8:30am -12:30pm
Aug 18 IEP Clinic - Spanish
4:00pm - 6:00pm
Aug 25 Transition to Adult Services
4:00pm - 6:00pm
Aug 25 CAC Meeting
6:30pm - 8:00pm
Sept
Sep 1 IEP Clinic - Cantonese
Sep 8 IEP Clinic - English
IEP Development & Dynamics:
Sep 10 Make Sure Your Voice is Heard
Sep 15 IEP Clinic - Spanish
6:00pm - 8:00pm
4:00pm - 6:00pm
Sep 22 Transition to Adult Services
4:00pm - 6:00pm
Sep 22 CAC Meeting
6:30pm - 8:00pm
Finding Assets to Employment
Sep 29 in Children with Disabilities
8:30am -12:30pm
4:00pm - 6:00pm
9:00am - 12:00pm
For more information or to register for any of these events, please call us at 415-920-5040 or visit us at www.supportforfamilies.org.
Are you a parent or guardian of a child with special needs and are
you active in your community? Do you want to provide support
to other families with a similar experience?
Consider becoming a Parent Mentor
volunteer!
Parent Mentors provide peer-to-peer support to other families
with similar experiences.
The Parent to Parent Training (P2P) is a course on "how to"
mentor other families. Training includes accessing Support for
Families as a resource, active listening techniques, and communication skills. This training occurs twice a year, in June and
December.
For more information, call 415-920-5040, or contact our staff:
(English) Joan Selby:
[email protected]
JOB OPPORTUNITIES
Family Resource Specialists (Bilingual Cantonese or
Bilingual Spanish)
Support for Families is looking for Cantonese-speaking
and Spanish-speaking parents of a children with
special needs. As an FRS, you will provide families of
children with disabilities information, education and
peer support on a warm line and at the drop-in center.
Social Worker (Bilingual Cantonese)
We are also looking for a Cantonese-speaking Social
Worker to provide short-term counseling and shortterm case management for families of children with
disabilities and other special health care needs and
families facing high risk challenges.
For more information, contact
[email protected]
(Spanish) JoAnna Van Brusselen:
[email protected]
SUMMER 2016
What is Inclusion?
For more information about SNIP or this article, contact
Allison Stewart, SNIP Manager: [email protected]
An Inclusion Resource Sponsored by
Inclusion is an approach, not a program.
Inclusion is…
An attitude and approach that seeks to ensure that every
person, regardless of ability or background, meaningfully
participates in all aspects of life.
An inclusive environment is a welcoming
environment:
•
•
•
Disability is a natural part of the human experience,
and an important part – but not the only part - of
an individual’s identity. Get to know children with
disabilities as people with their own interests and
ideas.
Inclusion is also about gender, class, ethnicity,
language, and other characteristics.
Research documents the benefits of inclusion for
typically developing peers, as well as for children with
disabilities.
<< Quick Tip >>
Many people are unsure about how to act when someone looks or acts very different from them. When you
meet a person who looks like they have a disability,
greet them the same way you would anyone else. If you
would shake hands, put out your hand. If you would offer a fist bump or high five, offer that. They will respond
however they are able.
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Inclusion
An inclusive program:
•
Has physically accessible and easy to use facilities and
materials.
• Goes beyond accessibility to support involvement
- Students are not just there next to their peers, but are actively involved.
• Has a consistent policy and strategy for determining
accommodations that allow all children to participate.
- An individualized assessment is used to understand the child’s needs.
- This policy is communicated clearly to family members/guardians.
Staff and leaders in inclusive programs:
• Focus on strengths rather than limitations.
- “What can the child do?” not just “what can’t the child do?”
• Focus on similarities first, then differences.
- “What does Julia have in common with the other children?”
• Actively treat everyone – including each other - with
dignity and respect.
- Person-first language, “a child with a disability” rather than “disabled child” keeps our focus on the person
• Speaking directly to, rather than about or for, a child.
• Develop written plans for including children with
disabilities.
- Evaluate and monitor the effectiveness of those plans over time.
• Are responsive to requests for accommodations, but
don’t assume children with disabilities need special
treatment.
• Teach all students to value diversity and to respect
and connect with others.
<< Quick Tip >>
Most children with disabilities can be
successfully included with minimal
accommodations and/or program-wide
improvements that benefit all participants.
SNIP is your first stop for detailed strategies,
like visual supports or setting clear expectations.
SUMMER 2016
Families Brave the Rain for
Access to Adventure 2016!
We are excited to say that Access to Adventure was a
phenomenal event. We braved the rain and the chilly
winds to host an arts and activities festival for kids and
youth with disabilities and special healthcare needs, and
what a day it was. We saw and danced to live music; got
superhero capes (the Cape Fashion Show was amazing!);
met, held, and learned about live animals; met the ATV
division of Park Rangers; and so so so much more.
Learning to Juggle
Volunteers were with us days before, prepping materials;
and were on-site with us carrying tables, painting faces,
giving out food, organizing and reorganizing (thanks
rain!); all with smiles and a jovial attitude.
The exhibitors, volunteers, and live music were all tied
together by a passion and sense of community; the
smiles as kids danced in front of the stage and the goofy
giggles during the cape fashion show all took the event
from soggy and chilly to a forever memory. Thanks again,
everyone, and we look forward to seeing you at Access to
Adventure next year!
2015 Annual Report Summary
The Support for Families Annual Report for 2015 will be available soon
on our website and at the Support for Families offices!
This is the first full year we have used our new Salesforce database.
This database has allowed us to keep better records of the issues
and outcomes of the families we serve and more accurately track the
numbers of families who received our services.
Some highlights:
•
•
•
•
•
•
We are proud to report that 1,473 (unduplicated) families received
one or more service from Support for Families. This is the first time
we have been able to report this unduplicated number across all
our services.
In 2015 Family Resource Specialists and social workers provided
individualized information and support to 1,028 families and 296
professionals (unduplicated numbers), making more than 3,382
phone, e-mail or in-person contacts.
Support for Families provided 330 workshops, clinics and other
education events in 2015. Attendance at these educational
events for parents and professionals totaled 4,048 with 2,101
unduplicated participants.
311 (unduplicated) family members attended one of the 25
Support Groups active in 2015.
Total attendance at our 13 family recreation and social events
reached 1,147 children and family members.
More than 290 volunteers contributed more than 2,451 hours of
service.
Cape Fashion Show
Meeting Reptiles with "Lick Your Eyeballs"
Support for Families continues to obtain feedback from the families
using our services. For example, in more than 190 surveys from families
living in low income neighborhoods and those with limited English
who attended Support for Families workshops and clinics …
•
97.9% agreed or strongly agreed that the training increased their
knowledge of their child’s special needs.
•
95.7% reported that they felt more supported.
•
97.4% reported that they increased their knowledge of resources
or services for their children.
•
94.7% learned strategies to advocate more effectively for their
children.
•
95.8% reported that they increased their ability to communicate
with professionals.
The 2015 Annual Report includes information on our activities during
the year and great photos of some of our 2015 events. The report also
summarizes the agency’s finances. (The complete annual audited
financial statement will be available at
our offices later this year). And we are
honored to list the names of more than
500 individuals, couples, groups and
businesses who made gifts to Support
for Families in 2015 to sustain our work!
Please visit the SFCD website
(www.supportforfamilies.org),
stop
by the Family Resource Center, or call
the office to request a copy of the 2015
Annual Report.
SUMMER 2016
Thank you!
Foundations, Groups, and Businesses
Theta Delta Xi
Chapter OX, P.E.O. Sisterhood
Harold L. Wyman Foundation
Falletti Foods
Gilfix & LaPoll Associates, LLP
Individuals
11
Development
Donations received Feb 1, 2016 through April 30, 2016
Support for Families gratefully acknowledges gifts from the
following individuals, groups and businesses. We apologize for any omissions or
Joseph Scafidi
Joseph Marotto
SICULI, LLC
In Honor of Heather Fischer
Saul and Barbara Timens
Paul Fischer
Anonymous
Ed Isana, in memory of Roderick Sigua
Diane Kavrell
C.J. Kingsley
Julia Griffths
Antonio Novelli
Larry Baker
David Hoffman
Deirdre Devine
Susan Monson
Leslie Kues
Adriana Ayala
Emma Campos
Jeffrey Garrison
Tamara Faggen, in memory of Irma Thaler
Nicole Nguyen, in honor of Tracey Bullock
Workplace Giving
Anonymous
Angela Wong
Marc Crayton
Simon Juridico
In Memory of Robert Lanzone
Albert Nigg
John and Geraldine Marotto
Umberto and Loanna Bozzetto
Charles and Mary Vella
Jimmy Ford
Robert and Liana Figone
Clara Lawrence
Anton’s House
Information & Resource Conference
2016
Sponsors:
Itani Dental
Gatepath
UCSF Department of Pediatrics
Lucile Salter Packard Children’s Hospital
Corporate Matching
AIG
AT&T
Chevron
PG&E
Gartner
United Airlines
JCPenney
Electronic Arts Outreach, in honor of Jake
Gamboa
Donors:
Ken Cooper
Adam Wang
Ronald Wolff
Kids Enjoy Excercise
Family Voices 2016 Summit
Sponsors:
Maternal and Child Health Bureau
California Children’s Hospital Association
California Healthcare Foundation
Lucile Packard Children’s Hospital at
Stanford
Lucile Packard Foundation for Children’s
Health
CenCal Health Plan
Disability Rights California
Miller Children’s & Women’s Hospital
Long Beach
Valley Children’s Healthcare
Loma Linda University Children’s Hospital
Children’s Speciality Care Coalition
UCSF Department of Pediatrics
UCSF Benioff Children’s Hospitals
Together We Grow
In-Kind Donations
Bay Area Discovery Museum
California Academy of Sciences
Children’s Creativity Museum
Walt Disney Family Museum
Oakland A’s
San Francisco 49ers
SFCD is Seeking New Board Members!
The Support for Families Board of Directors is looking for energetic people who want to ensure that San Francisco
families of children with disabilities have the support and information they need to enhance their children’s well
being and development. Although we are specifically seeking board members who have expertise in Media/Public
Relations and/or Fundraising, we are very open to hearing from other well-qualified candidates.
To be considered, email [email protected] for more details.
Support for Families values diversity and we strongly encourage family members, professionals, people with disabilities,
language and ethnic distinct communities, and other traditionally underserved communities to apply.
SUPPORT FOR FAMILIES
OF CHILDREN WITH DISABILITIES
1663 Mission Street, 7th Floor
NONPROFIT ORG.
US POSTAGE
PAID
SAN FRANCISCO, CA
PERMIT NO. 1887
SUPPORT FOR FAMILIES OF CHILDREN WITH DISABILITIES
All services are free of charge:
 Phone Line & Drop-In Center
 Information & Resources
 Resource Library
 Support Groups
 Parent Mentor Program
 Educational Workshops
 Family Gatherings
 Short-term Counseling
 Community Outreach
 Website: www.supportforfamilies.org
Board of Directors
Chris Dehner, President
Laura Lanzone, Vice President
Goli Mahdavi, Secretary
Diego Valderrama, Treasurer
Jake Block
Eileen Boussina
Heather Fischer
David Fazio
Jane LaPides
Jessica Litwin
Laurie Strawn
Jeffrey Ng, Child Care Worker
Christine Reina, FRS
Bouaphane "Bonnie" Sayavong, Child
Care Worker
Joan Selby, Parent Mentor Program
(PMP) Coordinator
Sujata Sherchan, Finance Administrator
Kristine Thai, Education Coordinator
Linda Tung, Administrative Coordinator
JoAnna Van Brusselen, PMP Coordinator
Lisa Yee, FRS
Tracy Young, Social Worker
This NEWSLETTER is published quarterly in English,
Spanish & Chinese. If you have a question or
comment, email us: [email protected]
Executive Director
Juno Duenas
Family Resource Center Network of
California (FRCNCA)
Debbie Sarmento, Manager
Staff
Family Resource Center (FRC)
Karen Baca, AC Coordinator/ AT
Specialist
Ali Barclay, Information and Resource
Coordinator
Martha Barrera, Child Care Worker
Marteal Barton, Child Care Worker
Family Resource Center Warmline,
Sarah Bennett, Support Services Program
Information, and Referral
Manager
Nina Boyle, FRC Program Director
Andy Breunig, Special Events and
T: 415.920.5040
Volunteer Manager
Tracey Bullock, Family Resource
Specialist (FRS)
Support for Families strives to present families Elaine Butler, Librarian
and professionals with a wide range of views
Sophia Carcamo, Social Worker
and options in its materials and trainings.
Michelle Cochran, Caregiving Services
Coordinator
The materials and trainings are not
Jasmin Gauci, Family Health Liason/FRS
necessarily comprehensive, are not
Joe R. Goyos, Education Director
meant to be exhaustive, nor are they an
endorsement of the author and/or presenter. Gus Gunn, Data Director
Dennis Lockett, FRS
Felix Lopez, FRS/Education Coordinator
If you would like to offer feedback or if you
Sean Lowry, Program Coordinator
know of additional resources, speakers and
Kenneth McElderry, Development
/or materials that may be helpful, please
Director
contact us at [email protected].
Support for Families
T: 415.282.7494
F: 415.282.1226
Family Voices of CA (FVCA)
Pip Marks, Manager
Sara Godley, Communications Manager
Allison Gray, Leadership Project
Coordinator
Help Me Grow
Nadia Thind, Help Me Grow Director
San Francisco Inclusion Networks (SFIN)
Zulema Rubalcava Barron, ASQ Specialist
Gary Bender, Director
Vanessa Chen, Inclusion Coach
May-Ling Joa, Inclusion Coach
Ramya Krishna, Early Childhood
Inclusion Specialist
Deborah Rollfs, Inclusion Coach
Sonia Valenzuela, Family Involvement
Manager
Special Needs Inclusion Project (SNIP)
Joy Okochi, Inclusion Specialist
Alison Stewart, SNIP Manager

NEWSLETTER - Support for Families of Children with Disabilities

Transcription

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