How it all started - lupus

Transcription

How it all started - lupus
How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase
awareness and strengthen advocacy for lupus - an unpredictable and relatively unfamiliar
condition that "does not have a clear set of signs”, and PEARL [People Empowerment for
Arthritis & Lupus] was recently conceived to empower patients not only with lupus but also
those with similar chronic debilitating conditions like rheumatoid arthritis, psoriatic arthritis,
and ankylosing spondylitis. Along the way, it became a humbling experience to learn about
the daily struggles and triumphs in the lives of the patients who prove to us that their illnesses
do not hamper their zest for life.
Art, energy and passion unleashed … Stemming from special friendships, shared
dreams and an exceptional spirit of volunteerism, these patients and their caregivers now take
center stage to finally unravel “the Patient, the Artist” musicale and art exhibit. This special
affair is also a fitting prelude to another LUISA initiative - the Asian Lupus Summit on
November 29 to 30, themed “improving outcomes, improving lives” - is a way to thank
ourmoversandgeneroussupporters who have fueled the drive for lupus education
and research through the years.
Life can be fulfilling despite a debilitating illness. As these patients come out of their
shadows, let us celebrate the beauty, life and strength of spirit - in every patient-artist, in
every arthritis and lupus patient who may be going through difficult times, and in every
person who cares for these patients.
(sgd) Sandra V. Navarra, MD, Rheumatology Educational Trust Foundation, Inc
Programme - 1
5:00 PM Opening of Art & Photo Exhibit (cocktails & string quartet)
Artists: Eloisa Aguinaldo Monique Estrella Nice So Edrick John Anasarias
7:30 PM Musicale Program hosts: Winston Maxino, Nicole Abas- Datayan
Songs to warm your heart by Jose Mari Chan (guest artist)
Programme - 2
Rhythm of the Night by Diane Warren
EJ Anasarias
Eloisa Aguinaldo
Christine Bañares
Arjun Binalla
Daisy Cabugao
Elyn Centeno
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Celebration by Kool and the Gang
Zenaida Estrada
Monique Estrella
Marjorie Inumerable
Kathleen Maneclang
Paul Albert Mendoza
Aileen Nabor
Dance Again
by Jennifer Lopez, Pitbull
Kathleen Maneclang
Mary Ann Nieva
Mary Ann Nieva
Grace Ocampo
Raya Paralejas
Jose Perez
Nice So
Ma. Pia Bernadette Villaruz
Aileen Nabor
Ma. Pia Bernadette Villaruz
The Prayer
by David Foster
Arjun Binalla
Grace Ocampo
Piano accompaniment: Catherine S. Zulueta
Programme - 3
Sonatina in C Op. 36, No. 1
Concertino
1st movement - Allegro by M. Clementi
Pianist: Monique Estrella
by G. Perlman
Greatest Love of All
Violinist: Kim Villaflores
Pianist: Catherine S. Zulueta
by Michael Masser, Linda Creed
Marjorie Inumerable
Pianist: Catherine S. Zulueta
Sun and Moon by Alain Boublil,
Claude-Michel Schonberg
Paul Mendoza
Raya Marie Paralejas
Pianist: Catherine S. Zulueta
Maalaala Mo Kaya
by Constancio de Guzman
Daisy Cabugao
Jose Perez
Pianist: Catherine S. Zulueta
Reflections of a beauty queen
Kyla Malupa
Programme - 4
A rapper’s tribute to Mama
Spencer Solis
Rap Showdown
Zenaida Estrada and
Spencer Solis
Fireworks by Katy Perry, Mikkel Eriksen, Tor Erik Hamensen, Sandy Wilhelm, Ester Dean
Kathleen Maneclang
Seasons of Love by Jonathan Larson
Arjun Binalla
Grace Ocampo
Marjorie Inumerable
Paul Albert Mendoza
Kathleen Maneclang
Raya Paralejas
Robelle Mae Tanangunan
Hand Mime “What a Wonderful World” by George David Weiss, Bob Thiele
Eloisa Aguinaldo
Christine Bañares
Daisy Cabugao
Elyn Centeno
Zenaida Estrada
Monique Estrella
Marjorie Inumerable
Kathleen Claire Maneclang
Aileen Nabor
Mary Ann Nieva
Raya Paralejas
Jose Perez
Robelle Mae Tanangunan
Ma. Pia Bernadette Villaruz
Marie Catherine Zulueta
A Precious Gem
An original composition for “the Patient the Artist”
Lyrics by Adrian Ramirez  Music by Catherine S. Zulueta
Support artist - performers
Dancers- Marian G. Galdones, MD, Geraldine Racasa, MD, Eugene Uy, MD,
Mary Grace Manansala, Dominique Villanueva, Johnrey Garcia, Reyn Tablizo
Hand Mime – Daryl Espiritu, Soledad Aguinaldo, Denise Banares, Eunice
Ongue, Eloisa Marie Ongue, Efryl Joyce Ongue, Irene Perez
Choreographers
Dance- Cesar Reynon, Marsha Mallari
Hand Mime – Emmanuel Sionosa, Michael Anthony Lee
Leggiero Strings and Chamber Orchestra
LOOK BEYOND
WHAT YOU
SEE……
Behind the scenes…
The people who made it happen
Producer
RHEUMATOLOGY EDUCATIONAL TRUST FOUNDATION, INC.
President and CEO: Sandra V. Navarra, MD
Co-Producer
PSORIASIS PHILIPPINES
Chairman: JOSEF DE GUZMAN
Director/ Musical Director
ADRIAN RAMIREZ / MARIE CATHERINE S. ZULUETA
“The Patient, the Artist” Steering Committee
Chair / Coordinators
EVAN GLENN VISTA, MD
HAYDEE GABUAY
MARIAN ESTHER GALDONES, MD
ROBELLE MAE TANANGUNAN
Members
EMMYLOU CASANOVA
ROSE-ANN JESSICA DIOQUINO
PAUL SANTOS ESTRELLA, MD MARIA SHEILA LEYNES, MD
MARIA ALTHEA N. MASANGKAY
PAUL MENDOZA
MARJORIE PLATILLA LEA DELA CRUZ SO
DELMA B. DIOQUINO
CAROL H. MARASIGAN
RAMON MIGUEL MOLINA, MD
WILFRED VILLARUZ
Thank you for making a difference….
• Dr. and Mrs. Jose Nicolas Cruz and Luisa
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Cojuangco-Cruz
Mr. and Mrs. Conrado and Kelly Bate
Mr. Ramon Ang
Mr. and Mrs. Nicholson Santos
Ms. Monique T. Estrella
Mr. James Donovan
Senator Juan Ponce Enrile
Ms. Jessica G. Reyes
Mr. Iñigo U. Zobel
Cambridge Dairy Ingredients Inc.
Ms. Rosemarie Uy
Lyric Pianos
Philippine Rheumatology Association
St. Luke’s Medical Center
University of Santo Tomas Hospital
• The many other individuals,
establishments and
institutions who have
supported our projects in
various ways
• The volunteers who have
selflessly shared their time
and talent
• Our patients and students
who consistently serve as
inspiration
• Our families who have been
steadfastly encouraging and
supportive
29-30 November 2012
EDSA Shangri-la Hotel, Manila, Philippines
Asian Lupus Summit
29-30 November 2012, EDSA Shangri-La, Philippines
WORLD-CLASS FACULTY
• International
• Philippine
18
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Asian Lupus Summit
29-30 November 2012, EDSA Shangri-La, Philippines
DELEGATES* = 478
*INCLUDING 18 INTERNATIONAL FACULTY
International
31
Philippines
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Rheumatologists
95
Nephrologists
75
Internist – Gen Med 65
Pediatricians
10
Dermatologists
5
Hema/Onco
5
Obstetrics Gyne
3
Trainees/students
• Residents
81
• Medical students
65
• Nursing/Nutrition students 20
Patients/caregivers
5
The Asian Lupus Summit was a
thrilling experience for us
medical students. We were
fortunate to have this opportunity
to be involved in an actual
medical convention, not just for
the experience of attending one,
but to learn from Lupus, as well.
We were provided with the
experience of attending lectures
given by different lupus experts
from around the world.
Raphael Anthony D. Guballa
Anne Therese I. Estanislao
Listening to the talks helped me comprehend some of the
things that confused me when I read Harrison's. I initially
thought that maybe the lupus summit would be
overwhelming and I wouldn't get anything. However, as we
sat there and listened, the speakers, especially Professor
Petri, shed light and made things seemingly easier.
Francisco, Joanna Mae F.
I do love how, even the experts,
were not afraid not to know the
answers to every question,
specifically when Dr. Petri was
asked on the dosage of
hydrochloroquine and she just
simply answered I don’t know
either, it just gave a good result
in my practice.
De Guzman, Lesleimar M.
Attending the Asian Lupus Summit was a big opportunity for me to
expound my knowledge about SLE and to experience an international
conference. It was my first time to witness an overwhelming event seeing
doctors from all around the world team up to share their understanding
and awareness, and give their best possible treatment modalities on the
disease that we all know has no cure. No medical student would refuse
to accept a grand educational occasion like this.
Fidel, Karlo P.
I could have studied or
rested on that long weekend.
But I was really curious about
this, and I know I will even
gain more if I attended it. I
am more excited now to
attend more summits and
conferences especially in
rheumatology again, or even
other specializations. It is
through continuing education
indeed that will make me the
best doctor that I can be in
the future.
Garcia, Lawrence George P.
It was great to see these
world renown experts
who do research and
publish articles that I only
get to read about in
journals or books. It’s an
amazing feeling to
actually see and listen to
them in person.
Garchitorena, Juan Carlo F.
This is just the beginning…
The organizers
Our heartfelt gratitude
• Dr. Jose Nicolas Cruz and Ms. Ma. Luisa O.
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Cojuangco-Cruz
Mr. Ramon Ang
Mr. Conrado and Mrs. Kelly Bate
Mr. and Mrs. Nicholson Santos
Ms. Monique T. Estrella
Ms. Joann Santos
Ms. Judith L. Mosley
Mr. Eloy P. Manalo
Philippine Charity Sweeptakes Office
Philippine Amusement & Gaming Corporation
Philippine Rheumatology Association
Benefactors of RETFI and the LUISA Project
EDSA Shangri-La Hotel
• Volunteers who
have selflessly
shared their time
and talent
• Our patients and
students who
consistently serve
as inspiration
• Our families who
have been
steadfastly
encouraging and
supportive
Thank you

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