Caring 15 Year Newsletter
Transcription
Caring 15 Year Newsletter
C A R I N G Like a sturdy oak tree, Ogeechee Area Hospice embraces patients and their families, offering them the needed support through the progressive stages of a life-limiting illness. “There is no time in a person’s life when they are more vulnerable than at the end of their life. I am touched by the profound caring and concern provided by Ogeechee Area Hospice— not only to their patients but the continued care to the families once their loved-one is gone. In deciding where to put my energy, I wanted to be connected with Ogeechee Area Hospice because their impact and dedication to the community are extraordinary.” Jean Bartels, RN, PhD Life is for the Living D eath is a natural and normal consequence of living — a final and destined passage for each of us. Fortunately, we live in a time when medical science has provided treatments for many medical conditions, and for patients with an advanced life-limiting illness, there are personal options as to how their last months, weeks and days may be lived through hospice care. The hospice movement was founded in America when the first hospice was formed in Connecticut in 1974. Giving the gift of “staying at home” was a primary mission of hospice in the United States. Over two decades would pass before many rural dwellers had access to hospice care. With the creation of the not-for-profit, Ogeechee Area Hospice in 1994, patients and their families were given choices and services that would radically change the way people experienced the endof-life in the Ogeechee Region. This unique philosophy of care is really a philosophy of life — to live fully, peacefully and without pain. To enhance this final journey, Ogeechee Area Hospice treats patients holistically with an approach addressing their needs physically, emotionally and spiritually. This is achieved through a caring and highly trained interdisciplinary team of professionals and support staff. The patient’s attending physician, the hospice medical direc- President: Ogeechee Area Hospice Chair: School of Nursing, Georgia Southern University tor, registered nurses, hospice nursing assistants, social workers, chaplains, physical therapists, and volunteers all contribute their unique skills to address patient and family needs. As a result, uncontrolled symptoms of the patient and stress, panic and guilt of the family are relieved. Most patients under the care of Ogeechee Area Hospice choose to be at home. The care-giving family may be naturally fearful and uneasy with the responsibility of such a challenge, but they soon learn that hospice will support them completely when their loved-one is under this umbrella of care. If staying at home is not possible, inpatient care may be an option. Whether a patient is at home, in a nursing home or under hospice inpatient care, he or she and their family may live each day fully, with the freedom to be together during this most precious time. And after a loved-one is gone, Ogeechee Area Hospice continues to connect with the family in a significant way. Grief is a natural response to death, and family may become challenged by difficult and perhaps tumultuous emotions. The bereavement program is designed for all members of the family, including the children. At Ogeechee Area Hospice, through the care we provide to our patients and their families, we never forget that life is for the living. Our Work is Our Calling Linda Dickerson, RN, BSN, CHPN Alona Moseley, RN, BSN, CHPN Director of Clinical Services “My role at Ogeechee Area Hospice engages me in an interesting and challenging job alongside other staff members who obviously care a great deal about what they do. Our organization’s mission of providing compassionate care for patients with terminal illnesses fits perfectly with my own desire to help others, and allows me to do so with an eye to honoring God.” Inpatient Center Manager “My aunt was in hospice care before I became a nurse. I felt that the care she received was such a service to our family that I wanted to become part of a hospice program myself. I worked first as a volunteer, and then became a nurse. Hospice nursing is my life’s work.” Liz Hutley, RN, CHPN Nicole Starks, CNA Home Care Team Nurse Nursing Assistant “My hospice work gives me a tremendous feeling of satisfaction and gratitude. I feel a sense of connection with the families. I laugh with them, cry with them and help them get the most of this time of their life. My days are very fulfilling — more than any other nursing that I have done.” “Taking care of people is an important life experience for me. When I have someone in my care, I take it very seriously and give personalized care because it could be me in their position. The caring, family atmosphere of Ogeechee Area Hospice is like none other. I love working with them.” Charlotte Edwards, LCSW Carl Ledbetter, M.Div Inpatient Social Worker “I see my role as empowering families so that they do not have to go through this alone. We walk side by side with them. I learn from patients and families every day then use that lesson to help the next patient and family. When my mother died, there was no hospice. My father and I did the best we could. Later, when my aunt died under hospice care, I saw the difference it made for families, and I wanted to be part of that.” Hospice Chaplain, Retired “Hospice was a wonderful opportunity for true ministry when people needed it most. It was like family to me, and I will always remember the brave people who made my experience so rich.” There Had to be a Better Way What Our Families Say “My mother and I were very close, and I became her primary care-giver. We loved to laugh and reminisce. With her care under the watchful eye of Ogeechee Area Hospice, our time together was cherished and complete.” I n a dimly lit room, in a small house in Statesboro, a young woman was tenderly patting her ill mother’s aching forehead with a cool washcloth. Linda was only 21, and her mother was much too young to be stricken with brain cancer. Nancy Bryant, a home health nurse in 1985, watched the gentle exchange between mother and daughter. At that time hospice care was not available in the region. The decision to reject continuous hospitalizations when further treatment was futile, as desired by Linda’s mother, was not typically considered. A death at home would bring a coroner’s inquest! However, Nancy felt compelled to assist this courageous daughter and her fragile mother with her last wish – to be at home. Permission was granted from the county coroner. Many visits and late-night calls lent the inexperienced yet loving daughter the support she needed to care for her mother. Linda lost her mother soon after. She died in the home that she loved, with the daughter that she loved. However, this story did not end that evening. A new story began — the story of hospice care in the Ogeechee region. Nancy drew on the strength of Linda and her mother’s request to die at home. As a critical care nurse and then home health nurse, she had cared for many patients at life’s end. “People with terminal illness were hospitalized and sent home; only to end up in the hospital again with pain and other symptoms, cry- ing for help and isolated from their loved ones. It was not anyone’s fault. The unique knowledge about end-oflife care and the resources were not available. I knew there had to be a better way,” she recalls. Time went by. Nancy enrolled in graduate school at Georgia Southern College in 1989, and then began teaching in the Georgia Southern’s Department of Nursing. Her philosophy around her own nursing practice began to shape years earlier as an undergraduate when Em Olivia Bevis PhD, the founder of the nursing program at Georgia Southern, took a particular interest in Nancy. It was several years later however, that she would connect Em’s teachings about ‘caring’ to her deep connection with terminally ill individuals. Nancy had allowed herself to be open to their intense needs, open to their sadness and open to their positive energy. “It was Em who taught me to ‘catch those moments of caring’ — to be knowledgeable and skilled, yet vulnerable and open to learning and my own intuition,” remembers Nancy. And so Nancy Bryant felt directed to make hospice available to people in this area, one step, and one patient and family at a time. “We are in a never ending quest to facilitate comfort and peace for every person under our care and their family,” says Nancy. While her nurses and other disciplines must possess knowledge and skill, she is keenly aware that an essential element to excellent hospice care is ‘caring’, as defined by her mentor, Em Bevis, years ago. For someone so attuned to such critical needs for patients and families, one must ask what is needed next for Ogeechee Area Hospice? Nancy envisions a wing to the Inpatient Center for patients who require hospice care but who are without a caregiver at home — a residential area of six to eight studio-type rooms. This unit would complement the acute care wings of the Inpatient Center. Patients without caregivers at home could feel safe and receive needed care. Looking back over these 15 years, Nancy sees that her experiences seem to fit together seamlessly, yet along the road there were many times of uncertainty. She says it best this way, “I have had many moments of doubts with more moments of awareness that life is larger than all of us and that a greater good guides us. I do not know if I was destined to do this. I know that my education and experiences prepared me in a way that I could not have planned. I also know that the nurses, social workers, chaplains and others who come to Ogeechee Area Hospice have that same sense of purpose. It is a wonderful cycle, because they now teach me every day. And each individual and their family transmit that energy which, in turn, compels us to continue this journey called ‘hospice care’.” “Ogeechee Area Hospice came into our lives when my mother needed extra loving hands to care for my stepfather. His illness was stressful for all of us, but with your assistance we were able to relax and just be together.” “Ogeechee Area Hospice cared for my mother in the nursing home and then at the inpatient center. The staff’s capabilities are extraordinary. There is nowhere else to get such caring care.” Understanding and Compassion C lark’s brother, Al, was sent home from a lengthy hospital stay. Curative cancer treatments had been unsuccessful. It was 1995 and Ogeechee Area Hospice, a relatively new service in the community, was called in to help. “We put a hospital bed in the dining room and the nurses visited him often,” says Clark. At 9:00 P.M. on a Sunday night, four or five days after Al returned home, the family noticed that his condition was changing. “The nurse came right away and stayed for two hours, until my brother took his last breath. I cannot tell you how much we appreciated that,” he remembers. “I most appreciate the dignity and Years later, Clark witnessed, once professionalism offered by the staff. The again, the special care and attention given by Ogeechee Area Hospice. His nurse came out and stayed with my friend’s young, adult daughter was brother until he passed. It would have dying. “When someone is older, you know that death is possible. Hospice been difficult to go through that alone.” seemed to understand the extreme - Clark Deloach differences of a young person dying and helped the family immensely,” says Clark. The hospice staff supported his good friend’s family and the daughter’s friends through their confusion and sadness at the loss of someone so young. Living through the loss of a brother and supporting a friend who needed the help of hospice to soften the harsh reality of the death of a child, were personal and touching experiences for Clark. They were events that helped shape his viewpoint on the hospice approach to end-of-life care. In 2001, Ogeechee Area Hospice was in the planning stages for a new Inpatient Center — a place for those who could not be cared for at home. So when asked to assist with a capital campaign to finance the construction of this much needed facility, Clark wanted to help. “I felt that hospice was just about the best place you could put your time and money,” he says. After a successful campaign and during construction of the new hospice facility, Clark joined the board of directors in 2004. Now in this important capacity, he offered his expertise to this caring cause. “There was a broad range of skills represented on the board,” he says. “Experiences ranging from finance to legal expertise and, of course, those who looked at things from a medical perspective.” Clark’s engineering background and practical viewpoint offered a balance. However, after the Ogeechee Area Hospice Inpatient Center opened, his hospice experience returned to the personal. In 2008, his mother died under the watchful care of the staff in the Inpatient Center after being attended to by Ogeechee Area Hospice at a local nursing home. “We thought she would not make it a week when she entered the nursing home,” Clark remarks. With extra guidance and care from the hospice staff, his mother lived for another year. When her symptoms became more acute she was moved to the Inpatient Center. In speaking about his relationship with Ogeechee Area Hospice, Clark expresses this sentiment, “The staff and volunteers made the process of dying more understandable and compassionate. You could not ask for anything more.” Part of a Greater Family T Lending his expertise as the former Director of Real Estate for the Postal Service in Washington D.C., Tom Coe (above) joined the board of directors of Ogeechee Area Hospice and assisted with the land acquisition and planning of the Inpatient Center. hey heard the news that anyone would fear. “The cancer has returned.” It was a new year, January 1997. At the time, Tom Coe and his wife Evelyn, believing that her years of remission would continue, were gently moving along with their lives. Now, a virulent reoccurrence of her breast cancer signaled an even tougher struggle ahead of them. Both were prepared to do whatever was required to send the disease away, one more time. Despite the treatment from physicians in Washington D.C. and in Georgia, Evelyn had a series of serious medical reactions. The hope was now for a miracle. During Evelyn’s hospitalization her personal physician and a social worker approached them with an option that they did not want to consider — hospice care. “I don’t like this idea, but I will think about it,” Tom remembers saying to Nancy Bryant during a lengthy phone conversation. He was angry and not ready to give up — but the hospital was sending Evelyn home. Nancy made a home visit. “I was assured by Nancy’s confidence in the hospice approach and was touched by her empathy,” says Tom. Within 24 hours a plan was prepared for Evelyn’s care and regular hospice visits began. Hospice care is not a permanent decision. Anyone who enrolls in hospice always has the option to seek a different medical approach. With the emphasis on pain management and comfort that was provided, Evelyn and Tom were able to continue somewhat of their former lifestyle — going out for dinner among other small outings. There came a day in February when Evelyn was too weak to stop for dinner after a doctor’s appointment. “It was Valentine’s day,” He remembers. Their days were spent at home from then on. Evelyn died at home on March 15, 1997. Tom returned home from the inevitable funeral home arrangements to find that Ogeechee Area Hospice had removed all the medical equipment — the sad signs of her illness. “I felt cared for. They knew how hard it would be for me to return home and see her hospice equipment still there.” Not long after, Tom contacted Nancy and said, “What can I do to help?” With a respect for the difference Ogeechee Area Hospice had made in his life, he assisted in the production of an educational video about this unique, excellent service with Sharyn White, an assistant professor of communications at Georgia Southern College. Sharyn later became is wife — a transition into the next phase of his life as a result of his association with Ogeechee Area Hospice. Then, lending his expertise as the former Director of Real Estate for the Postal Service in Washington D.C., Tom joined the board of directors of Ogeechee Area Hospice and assisted with the land acquisition and planning of the Inpatient Center. In his timeless video, Tom gives profound testimony to his journey with his wife and her care by Ogeechee Area Hospice. He passionately remarks that they had feared a loss of control and an intrusion into a very personal part of their lives but “instead,” he says, “we found ourselves part of a greater family.” The First 15 Years of Caring 1993-Summer 1993-Fall 1996 1994-April Herb O’Keefe, Ph.D., a Nancy gets to With the first The first Children’s faculty member in the School work in a small Bereavement of Business at Georgia patient experi- office provided ence complete, Camp is founded Southern College and Nancy to her in the by Social Worker Bryant, RN, MSN, two vision- certification former Bulloch with Medicare Peter Welle. aries for hospice in Bulloch Memorial and surrounding counties, meet to discuss their and Medicaid is Hospital. With ideas for an area hospice. Herb had a positive granted. A pub- seed money, lic education prior experience with Hospice Savannah when an office space and a nurse with a mission for her he lost his mother. Nancy was an experienced and physician community, Ogeechee Area Hospice is founded. awareness 1996-February program is initi- Ogeechee Area Hospice splits from Ogeechee home-health nurse and nursing educator at Georgia Southern College who was keenly aware 1994-March ated. Targeted conversations with area doctors Home Health when it is sold to the new owners begin to bring in patient referrals. of East Georgia Regional Medical Center. Board of the lack of resources in the area. She had Ogeechee Area experienced first-hand the pain, isolation and out- Hospice admits its of-control symptoms of patients with life-limiting first patient, Marion For the first year, the hospice struggles to survive million in proceeds from the sale, now an asset illnesses. Her interest in terminal and high-risk Hitt, a humanitarian of Ogeechee Area Hospice, be used for the patients drove her concern for expanding services with an average of four patients a day. of the community, to the community. who was proud to be patient number president, Herb O’Keefe, proposes that the $2 construction of a future inpatient facility. Caring for 10-12 patients a day, the primary use 1994 Although others had tried unsuccessfully, Herb one. Mrs. Hitt is the first person in Bulloch County of available funds is patient care. With a stream- and Nancy set out to make a significant change Martha Firges, a to be granted her desire to die at home, surround- retired RN, begins lined budget and a passion for the hospice in end-of-life care for their community. With a ed by loved ones. Her care was administered by mission, Nancy juggles her time between patient proposal she had prepared, Nancy approaches her volunteer service Nancy, Jean Iler RN, a volunteer chaplain and with the new agency. care, community education and administrative the Ogeechee Home Health Board of Directors. daughter Harriet. “My experience with the nurses duties. Nancy and Herb have a dual vision of hospice, Martha’s dedicated from Ogeechee Area Hospice is one that I shall she knows that 90% of the care would be in the service to patients never forget. I could not have gone through such home and Herb is focused on inpatient care. Both and families extended a heart wrenching period without their help. Their aspects of hospice care are part of the whole until her death in number one concern was for my mother’s com- hospice story. fort, but the compassion they showed to me was volunteers would follow in her footsteps through the more than I ever expected. They prepared me for coming years. The board of Bulloch Memorial Hospital, with the death that was near for my mother. God was positive input from the hospital’s physicians, truly working through these wonderful ladies and recognizes the need in the community and wants I’ll be forever grateful.” to lend its support. The hospital awards Nancy a - Harriet H. Ellett $50,000 start-up grant. 2008. Many hospice 1997 2001 the perfect match and a new location is founded. Today Dropped between existing elderly oak trees, the building fits the site perfectly in the seemingly destined space. 2003 With a growth of 10% per year, the ensuing years Property is purchased on Country Club Road in continue operations with a lean office staff. The Bulloch County for an inpatient center. Atlanta- major balance of funds continues to be directed based architects, Perkins and Will, experts in the towards clinical care. This patient-first mission unique and complex design of hospice inpatient exceeds the ratio of nurse to patient care required facilities, are hired to execute a design. The by state guidelines. Emotional and spiritual remainder of the design team includes hospice Pope Construction begins construction with board 85-90 patients, and continues its primary goal of support is also emphasized, and a small army staff members, Nancy Bryant, Charlotte Edwards, oversight and community curiosity and enthusi- patient-first care. The hospice has grown to include of trained volunteers are at work traveling from Linda Dickerson and board member Dick Mellett. asm. 70 paid staff members and over 50 volunteers. home to home. Ironically, Marion Hitt’s home on Once designed, the 17,000 sq. ft. project costs Zetterower Avenue, now an office building, serves come in over $4 million. In need of another $1 mil- as the Ogeechee Area Hospice headquarters. lion, a capital campaign is planned and initiated of directors with a reputation of compassionate and in December. Over the next 6 months, community impeccable care. 2000 commitment exceeds expectations, with over $1 Funds from the original $2 million seed money million pledged. Ogeechee Area Hospice has a daily census of Ogeechee Area Hospice continues to thrive under 2005 - August have grown to approximately $3 million. With the continued growth to an average of 43 patients a Planning continues on the new facility but issues day an inpatient facility is seriously needed for with sewer and water are driving the cost of patients requiring intense intervention. It is now a construction to an excessive amount. The site has realistic vision. become less workable. The 12 bed, state-of-the-art, Ogeechee Area Hospice Inpatient Center is opened to meet the growing Meanwhile, a controversy is brewing over the needs of Bulloch and surrounding counties. The former site of the Bulloch Memorial Hospital and interdisciplinary home care team, management staff its usage. Hearing about the county’s plan for and business personnel now work from an adjoining demolition, Nancy, Lamar Reddick and Dick Mel- wing. The Chapel, a center piece of the space, gives lett, approach the county manager with a plan to testimony to the philosophy of care and commitment solve the county’s problem. If the county donated of the community. The hospice is serving an aver- the land, the new Ogeechee Area Hospice would age of 68 patients a day, with an alternative setting have a home. Bulloch County officials recognize when symptoms need critical attention or death is not desired at home. the careful direction of the current volunteer board Medical Directors Ogeechee Area Hospice Presidents Steve Gottlieb, MD 1994-1999 Herbert O’Keefe, Ph.D. 1994 - 1998 Andrew Cichelli, MD 1999-2001 Bruce Avant 1998 - 2001 John Gerguis, MD 2001-Present Tom Coe 2001 - 2002 photo by Andrea Leonardi Jean Bartels, Ph.D. 2002 - 2005 2007 - Present Trish Tootle 2007 - Present A Jewel in the Community S ome years ago, president of the board of Ogeechee Home Health, Herb O’Keefe recognized the need for hospice care in the area. Unlike many who were naïve about the benefits of hospice care, his mother had been a patient of Hospice Savannah. Herb therefore knew, first hand, about this holistic and compassionate care. His thoughts would often wander to this personal and positive experience for his mother and his family. But Herb’s talents were in a different arena, as a professor of accounting for the Georgia Southern School of Business, he was skilled in finance and administration. So when his volunteer work as board president with Ogeechee Home Health Agency brought him together with Nancy Bryant RN, MSN, a faculty member at Georgia Southern and a parttime home health nurse with the agency, a hospice visionary team was founded. “Our concern was to be able to supply a full stratum to the community and we felt that hospice was the piece that was missing,” Herb says. Ogeechee Home Health then formed a sister agency, Ogeechee Area Hospice, under the leadership of Nancy Bryant. “Events just seemed to fall together and the community benefited from it greatly,” he adds. A short two years later Ogeechee Home Health Agency, a non-profit agency funded and created in 1973 by Charlotte White RN and her husband Dr. Steve White, was acquired by the new owners of the East Georgia Regional Medical Center. As a result, Ogeechee Area Hospice was left as a freestanding nonprofit entity, now governed by Herb O’Keefe and the former board of the home health agency. He encouraged his hospice board to allocate the proceeds from the acquisition as seed money for the future construction of a hospice inpatient facility. With his financial guidance and Nancy’s health care expertise, they were able to engage an entire region in the support of a much needed hospice home care program; with Herb’s vision and plan for a future hospice inpatient facility. Years later, Herb looks back on the accomplishments of the boards of Ogeechee Home Health and Ogeechee Area Hospice and believes that the Inpatient Center is a “jewel in the community”. “I had the night shift driving back and forth between Savannah and Statesboro for about a month helping my sisters, when my mother was in Hospice Savannah,” he says. Now residents of the area have a hospice close to home. Ogeechee Area Hospice exists for the sole purpose of providing expert comfort and bereavement support to persons affected by a life-limiting illness. With a common spirit of compassion, choice, respect and cooperation, we fulfill our commitment of promoting human dignity and comfort to eligible residents of Bulloch and the surrounding counties. “Caring” Ogeechee Area Hospice Nancy Bryant, Executive Director Bonnie Jaeger, Writer Hilde Keldermans, Graphic Designer www.ogeecheeareahospice.org • 912 - 764-8441 Ogeechee Area Hospice provides care based on need regardless of age, sex, race, religion, lifestyle, diagnosis or ability to pay. GA License # 016057-H. If you would prefer not to receive any further promotional information, contact the Community Relations Coordinator at 1.800.236.1142.