to Beat Parkinson`s - National Parkinson Foundation

WHATEVER IT TAKES
to Beat Parkinson’s®
ANNUAL REPORT | 2013
ABOUT THE FOUNDATION
The mission of the
Founded in 1957, the National Parkinson
Foundation (NPF) is a leading, national
National Parkinson
organization with an extensive network of
Foundation (NPF) is
chapters, support groups, and our global
to improve the quality of
Parkinson’s care through
research, education
and outreach. Centers of Excellence. Unique among the
national Parkinson’s organizations, NPF
is the only organization with a singular
focus on improving the quality of care
in Parkinson’s disease. NPF has funded
more than $180 million in research,
education and support services.
NPF programs touch more
than one million people a
year through our network
of United States chapters,
support groups, patient
conferences, and
our online resource,
Parkinson.org.
NPF’s Centers of Excellence
are leading medical centers
around the globe that excel in
research, care and community outreach,
delivering care to more than 50,000
Parkinson’s patients.
CEO’S MESSAGE
This past year has been marked
by the launch of even more NPF
programs for people living with
Parkinson’s and their families. We
truly believe that all people deserve
access to expert Parkinson’s care
and information no matter who
they are, where they live or how
much money they have.
It is a lifelong commitment to the
underserved that has been a strong
tenet of our retiring Chairman of
John Kozyak, Joyce Oberdorf and Dr. Bernard Fogel
the Board, Dr. Bernard Fogel. For
six years, Dr. Fogel led the Board as a strong advocate of our mission to focus on improving the lives
of patients today. As a former medical school dean, Dr. Fogel worked tirelessly and with a big heart
to open doors in his extensive network. He has cared deeply, and no task was too big or too small to
engage his prodigious energy. His passion to help—and help mightily—stemmed from seeing his own
father struggle with the disease for decades.
Now he passes the Chairman’s baton to John Kozyak. Both of John’s parents have Parkinson’s and
he has seen firsthand the difference that education and support can make in the ability to live a better
life now and he is strongly committed to the cause. A prominent attorney with a national profile, John
too has a history of interest in the underserved, and single-handedly runs a highly-regarded minority
mentoring foundation in South Florida.
As president and CEO, it has been my honor to work side-by-side with wonderful leaders such as
Dr. Bernard Fogel and John Kozyak. Together, on behalf of the million Americans with Parkinson’s
and their families, we are committed to doing whatever it takes to beat Parkinson’s.
Warm Regards,
Joyce Oberdorf
President and CEO
WHATEVER IT TAKES to Beat Parkinson’s®
2
O
ver our history of six decades, NPF has maintained
a steady commitment to eliminating Parkinson’srelated disparities in health care. In partnership with
NPF’s Chapters and Centers of Excellence across the United
States, NPF has developed materials and resources to respond to
the diverse needs of all people who are affected by Parkinson’s disease.
In 2013, NPF brought the lifesaving messages of the successful Aware in Care campaign
to underserved communities by providing thousands of free hospitalization kits in low health
literacy English and Spanish versions. Since the inception of the campaign, 31,500 kits have
been distributed to help people get better care in a hospital.
NPF is working with five Centers of
Excel­lence to expand outreach to ethnic
communities: Johns Hopkins University
in Baltimore, Baylor College of Medicine
in Houston, University of Pennsylvania in
Philadelphia, Barrow Neurological Institute
in Phoenix and Georgetown University
Hospital in Washington, D.C.
The Aware in Care campaign to the
underserved was made possible by the
generous support of Medtronic Philanthropy.
The overall Aware in Care program is also
supported by the generous contributions
of its lead sponsor, the Edmond J. Safra
Philanthropic Foundation, and The Eleanor
M. and Herbert D. Katz Family Foundation.
Learn more about the campaign at www.awareincare.org.
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ANNUAL REPORT | 2013
{
OUTREACH
TO THE UNDERSERVED
“ T
he unfortunate reality in our country
is that many people remain isolated and
unable to access services in the healthcare
system at large. NPF is working to ensure
that everyone—regardless of who they are,
where they live, what language they
speak or how much money
they have – receives muchneeded Parkinson’s
resources. ”
Becky Dunlop, RN
— Nurse Coordinator for the
Johns Hopkins Parkinson’s
Disease and Movement
Disorders Center,
an NPF Center of Excellence
WHATEVER IT TAKES to Beat Parkinson’s®
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ANNUAL REPORT | 2013
NARROWING
THE GAP IN CARE
}
“ W
e’re changing the way that
Parkinson’s disease is managed
by bringing care directly to the
patients, and we wouldn’t be able to
do this without the support of NPF. ”
Ray Dorsey, MD
— University of
Rochester,
an NPF Center
of Excellence
5
WHATEVER IT TAKES to Beat Parkinson’s®
H
alf the people in the world with Parkinson’s
disease are suffering needlessly because they
aren’t receiving care from a neurologist.
Dr. Ray Dorsey has found that usually the problem isn’t that
patients won’t see a specialist; it’s that they can’t. Rather than
asking older individuals with a disabling condition to drive across
their state to an urban medical center, he is working with NPF to prove that
great care can be delivered to patients in their homes.
New technology is making this possible through telemedicine—using computers to connect
doctors and patients. It’s not just distance that separates patients from specialists: caregivers
need time off from work for appointments, increasing disability makes travel harder – and
travel can be expensive. A video call with
your doctor from your home can make
accessing great care so much easier.
For the current study, Dorsey partnered
with NPF to lead a team of investigators
from across the NPF Center of Excellence
network to show that his expert care model
can scale to nationwide delivery. Patient
recruitment for the program from NPF
Centers began in early 2014.
This pilot program will compare specialist
telemedicine to the care people receive in
their own communities. The goal is to prove
that people with Parkinson’s can get expert
care via “virtual house calls,” making it easier for people all over the world to receive quality
Parkinson’s care. Focused on engaging and empowering patients, this program won a multiyear $1.7 million research award from the Patient-Centered Outcomes Research Institute (PCORI).
For more information, visit www.parkinson.org/telemedicine.
6
N
PF is dedicated to developing new concepts and
technologies that engage people in their own care.
In 2013, NPF launched a first-of-its-kind app,
Parkinson’s Central, for people with Parkinson’s and their
loved ones. Now, anyone with a smartphone can directly access
the Parkinson’s-related information they need, where and when they need it.
Parkinson’s Central was developed as part of NPF’s overall vision to meet an ever-increasing
demand for online health information and to help people with Parkinson’s now. The tool is
yet another way in which NPF is using technology and innovation—on top of multiple social
media tools—to help people diagnosed with Parkinson’s regain control of their life.
Parkinson’s Central is
the second free app that
NPF has released; the
Parkinson’s Toolkit,
which launched in 2011,
is an app designed for
health care professionals.
Parkinson’s Central was
made possible by the
generous support of
donors like you as well as
Teva CNS and AbbVie.
For more information on the app, visit www.parkinson.org/parkinsonscentral.
7
ANNUAL REPORT | 2013
{
EDUCATION
AT YOUR FINGERTIPS
“ Easy to use and easy to read,
Parkinson’s Central is a veritable
encyclopedia of Parkinson’s issues,
not only regarding the treatment
of the disease, but as a guidebook
for positive and high-quality
living with Parkinson’s. ”
James Morgan
— member of NPF’s
South Florida Advisory
Council, who was diagnosed
with Parkinson’s disease
five years ago
WHATEVER IT TAKES to Beat Parkinson’s®
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ANNUAL REPORT | 2013
NPF : 2013
THE YEAR IN NUMBERS
WHATEVER IT TAKES to Beat Parkinson’s®
56,000
DONORS
7,500
PATIENTS
COUNSELING TO
O F
C A R E
LIVING
T H E
F O R
WITH
P E O P L E
PARKINSON’S
CLINICAL STUDY OF PARKINSON’S,
AT 20 NPF CENTERS OF EXCELLENCE
13,000
CALLERS
11,100
FREE, LIFE-SAVING
AWARE IN CARE KITS
WERE DISTRIBUTED
TO HELP PEOPLE
GET BETTER CARE
IN
9
Q U A L I T Y
OUTCOMES PROJECT, THE LARGEST
OUR TOLL-FREE HELPLINE,
PROVIDED VITAL
I M P R O V E
ENROLLED IN NPF’S PARKINSON’S
TRAINED SPECIALISTS AT
1-800-4PD-INFO,
SUPPORTED OUR MISSION TO
A
HOSPITAL
PARKINSON.ORG — THE GO-TO
RESOURCE ON THE WEB — HAD
100,000
UNIQUE VISITS FROM MORE THAN
1 million PEOPLE
PEOPLE
SERVED THROUGH THE
NPF CHAPTER NETWORK
20,000 WALKERS
PARTICIPATED IN NPF’S MOVING
DAY® IN 19 LOCATIONS ACROSS
THE USA, RAISING CRITICAL
AWARENESS OF THE DISEASE
IN LOCAL COMMUNITIES
NPF’S VIBRANT
ONLINE COMMUNITY
ENGAGED WITH
FANS MORE THAN
50 MILLION
TIMES
210,000
COPIES
8,500
PEOPLE
OF OUR FREE EDUCATIONAL MANUALS
ON 10 DIFFERENT TOPICS AND NPF’S
NEWSLETTER (THE PARKINSON REPORT)
MAILED TO HOMES ACROSS AMERICA
FROM AROUND THE WORLD TUNED
IN TO EIGHT FREE WEBINARS
HOSTED BY PARKINSON’S EXPERTS
10
THANK YOU !
The National Parkinson Foundation gratefully acknowledges
all of the people who made a donation of $1,000 or
more between July 1, 2012 and June 30, 2013. It is the
thoughtfulness of these supporters that allows us to educate and assist people in communities across the country
about Parkinson’s disease. We thank them for their dedicated support.
GIFTS OF $250,000
AND ABOVE
IFTS OF $100,000
G
TO $249,999
GIFTS OF $50,000
TO $99,999
GIFTS OF $20,000
TO $49,999
Estate of Donald L. Allred
Trust of Arlene M.
Bevilacqua
Jacob C. Arant, Sr.
Andrew B. and Mona Albert
Estate of Liesel Brown
The Applebaum Foundation
Trust of Rex A. and
Josephine S. Collins
AbbVie Neurosciences
Rollin M. Gerstacker
Foundation
Terry and Regina
Armstrong Family
Charitable Foundation
Estate of Jack Roth
Edmond J. Safra
Philanthropic Foundation
Estate of Viola B. Cayea
Harcourt M. and Virginia W.
Sylvester Foundation
The Hansen Trust
Jerome A. Yavitz Charitable
Foundation, Inc.
Jerry M. Lindzon
Trust of Edna Cottun
Estate of Dianne Kuhrt
Medtronic Foundation
Estate of Dorothy M.
Holeton
NPF South Palm Beach
County
The Don A. Hunziker
Memorial Foundation
Parkinson’s Unity Walk
The Eleanor M. and Herbert
D. Katz Family Foundation,
Inc.
Estate of John R. Peters
Estate of Carol C. Price
UCB, Inc.
Trust of Robert E. Neill
Parkinson Foundation of
the National Capital Area
Right at Home, Inc.
Solomon Family
Foundation
Teva Neuroscience, Inc.
US WorldMeds
Estate of Rose Vosbigian
Leo M. Amoroso
The Jane H. Berktold
Parkinson Fund
Bloomfield Family
Foundation
Trust of Ricki Fountain
Community Health
Charities
Medtronic, Inc.
NPF Central & Southeast
Ohio
NPF Georgia
NPF Orange County
California
NPF Western New York
NPF Western Pennsylvania
The Oreffice Foundation
The Parkinson Council
Trust of Harold J. and
Phyllis A. Schwend
Estate of Ruby Stevens
Estate of Edward C.
Stevenson
The Diller-Von Furstenberg
Family Foundation
11
WHATEVER IT TAKES to Beat Parkinson’s®
ANNUAL REPORT | 2013
GIFTS OF $10,000
TO $19,999
Peachtree House
Foundation
GIFTS OF $1,000
TO $9,999
Patricia and Gardner Bemis
Fund of The Minneapolis
Foundation
Anonymous (18)
Lisa D. Bertani
Abbott Laboratories
Employee Giving Campaign
Blank Charitable
Foundation, Inc.
Estate of Ada Bloom
Anonymous
Beth Kobliner Shaw and
David E. Shaw
Karl Albert
Estate of Rosario Simon
Trust of Rita Alexander
Alan M. Slewett
Bruce H. Bryant
Dr. and Mrs. Enrique J. Sosa
Paul and Pearl Caslow
Foundation
Ellen and David A.
Abramson
Degna Spoldi Private Family
Foundation
Chelsea Therapeutics
Kathleen S. and
Jeffrey J. Abrash
Estate of the Reverend
Donald Van Dreser
Erwin Aderhold
Dr. and Mrs. Lynn and Kate
Christianson
W. G. Christianson
Foundation
Robert and Joanne Crown
Income Charitable Fund
Mr. and Mrs. Charles M.
Eldridge
Ross S. Evans
Five Millers Family
Foundation, Inc.
Estate of Shirley M.
Welchko
Otto C. Winzen Memorial
Advised Fund of the
Catholic Community
Foundation
Mary Ellen and Bruce
Wisnicki
Emily and Richard
Alexander
Malik Ali
Victor M. Almeida
Ame Foundation, Inc.
American Parkinson
Disease Association
Paul E. Andrews, Jr.
Ashland Foundation
Associated Electrics, Inc.
Estate of Kathleen Greenler
Isabel L. Bader
Estate of Theodore R.
Grimes
Dexter F. Baker
Beulah Mae Jones-Mitchell
James J. Baker
Katten, Muchin, Zavis,
Rosenman Foundation, Inc.
Dorothy M. Ball
Marian S. and Frederic T.
McAuslan Endowment Fund
The McCamish Family
Charitable Fund
Ed Baker
Marcia V. and R. Franklin
Balotti
Francine Barbe
Blue Cross and Blue Shield
of Illinois
BMO Harris Bank
Estate of Elaine D. Bohanon
James Bosshart
Colonel Conrad Boterweg
Roxanne Brandt
Charles Bray
Jeffrey W. Breeser
Elizabeth and
William F. Broll
Lewis D. Brounell
Charitable Trust
David Browdy
William E. Brown
Linda G. Brown
Donald Burns
Miss Harryette Campbell
Mr. and Mrs. Michael
Cannizzo
Gary O. Caris
Jeff Carson
NPF Greater Rochester
John E. and Nellie
J. Bastien Memorial
Foundation
NPF Heartland
Ben Bauer
Tammi and Craig E. Chalfie
NPF Central Savannah
River Area
Claire Beekman
The Chalfont Foundation
Rolando Castellanos
CBS Radio
Jill Chalsty
Ellen M. Chen
12
Chernega Family Fund
The Daus Family Foundation
Lois W. Dyk
Margaret and John Gergich
Chicago Park District
Davit Charitable Fund
Chinowth Charitable
Lead Trust
Deer Lodge Centre
Eagan Family
Foundation, Inc.
Charles B. Gilbert
Foundation, Inc.
Brian D. Eckhart
Judith S. Gillies
Michael Chipman
DeFreitas Family
Charitable Gift Fund
Linda Ellis
James Gillis
Douglas R. Clovis
Delouri Farms, Inc.
John P. Clulow Fund
The Gerald and Deanne
Gitner Charitable Fund
Stephen Cohen
Charles H. Denny, III
Charitable Trust
Dr. and Mrs. Robert and
Janet Ettleman
Carol Glickenhaus
Judith E. Cohen
Joe Derosa
Eveready Battery
Company, Inc.
Toby Cohn
Designs by Pegasus, Inc.
Richard A. Goldstein
Community Health
Charities of Florida
Willa Ruth Deveny
Helen and Charles
Fedalen, Jr.
Community Health
Charities Minnesota
Community Health
Charities Of NY, Inc.
Gordon Crawford
Estate of Thelma L.
De Vorss
Kathryn and Ernest
Dibenedetto
Harriet Ford Dickenson
Foundation
The Felterman Foundation
Dr. Moses and Beatrice
Goodman Fund
Estate of Robert Ferguson
Nancy Gordon
Jane Feldman Fields
Gary J. Gorton
The Fisher Family
Foundation
May Gossett
James A. Fletcher
Peter M. Gotsch
Crawford Group Sotheby’s
International Realty
DLC Empire, LLC
Meg Fletcher
Elizabeth and
Douglas T. Granat
Jeanette and Ron Doggett
Nancy and Kenneth Granat
Mary J. and Neil Crosby
Donate For A Cause, Inc.
Dr. and Mrs. Bernard J.
and Judith Fogel
Candace Cummings
Mark Duffy
Kathleen Fones
Daluge Family Fund
Baxter and Deon
Dunaway Trust
Rudolph and Hilda U.
Forchheimer Foundation,
Inc.
Rodger L. and Gloria
F. Daniels Charitable
Foundation
Sue Dupuis
Margaret and David A. Fort
Anne Fortney Riddell
Estate of Evelyn Foust
Judy Freeman
Sarah Friar
Friends and Colleagues at
Naval Reactors
Carole Gray
Garland and Agnes Taylor
Gray Foundation
Lisa Griffin
Emily and Peter Gross
The Robert and Lynne
Grossman Family
Foundation
Vincent Gubin Giving
Account
Joyce C. Gumm
Jack Guthrie
Cynthia E. Fruchtman
Violet Haelterman
Karen and Todd Fruen
Hahn Loeser and Parks LLP
Edward G. and
Catherine M. Galante
Estate of Ruth F. Hall
GE Foundation
GE Healthcare
Cheryl and
Richard K. Gelber
WHATEVER IT TAKES to Beat Parkinson’s®
Sulu and Gary Grant
Madelon and Roger R. Fross
Robert Gathman
13
The GMK Family Fund
Mr. and Mrs. Jack Harter
John A. Hash, Jr.
Hawaii Community
Foundation
ANNUAL REPORT | 2013
Health Care Service
Corporation
Kazuko and Ken-Ichi Kubota
John F. Manning, Jr.
Samuel Mohabir
Alfred P. Kuehlewind
Melissa Hefner
Robert A. Moore
John C. Kupetz
James A. Marino and
Deborah Wright
Dana and Timothy E.
Martorella
Sherri Mowery
Johannes H. Heister
Esther Lam
Herbert Kay Parkinson
Chapter
Betty and Robert L. Lambert
Estate of Robert P. Herzog
Marilyn and Donald Hibbert
John J. Hoffee
Edgar R. Larsen
Margaret H. Larsen
Estate of Dessie L. Latham
H. Randolph Holder
Lawrence Livermore
National Laboratory
Roy L. Holt
Helen and Yum Cheung Lee
Donald W. Homan
Rita A. Lehnert
Estate of Jacqueline Hood
William R. Leighton, Jr., MD
Nancy Hopkins Reilly
Leon Lemon
Vicki S. Horning
Paul Huston
Francis and Gertrude
Levett Foundation
IAP Worldwide Services
Joyce and Sidney Levine
Interpublic Group
Juliana Li
Denise and Barry R. Jackson
Elizabeth Liacos
Robert F. Jeppesen
Life Care Centers of
America, Inc.
Fern I. Jewell
Holly and Dare Johnson
Burton and Rose Kahn
Family Foundation
The William and Nancy
Lifland Fund
Trust of Marilyn L. Lindsay
Thomas F. Masat
Mrs. Flora E. Mason
Asha P. and
Pankah V. Master
Brooke Mastrorio
Joan S. Mathews
Judith M. Moss
Timothy Murphy
Joan M. Naughton
Neuroscience
Consultants, LLC
Pamela and Andrew
Newton
Nina Matis
Nickels and Dimes
Incorporated
Max Gruber Foundation
Estate of Lloyd O. Nielson
Lorie Mayer
Robert Nolan
Frances P. McCarey
Ann-Mari Nordgren
Paul McCaul
Jean F. Norfleet
Marsha and Robert E.
McCleary
Noritake Co. Inc.
McClelland Family
Foundation
NPF Kingdor Bahamas
Estate of Brooks McClure
Charles H. McCrea
James and Marie McCurdy
Family Charitable Trust
Noven Pharmaceuticals, Inc.
NPF North Florida
NPF South Dakota
Betty C. O’Connell
Michael G. O’Hare
The McCutcheon
Foundation
OnMessage, Inc.
Keri McGinness
Claire E. Orner
Gustaf Westfeldt McIlhenny
Family Foundation
Estate of Sheila K. Orr
Sue Kamp
John T. Loftus
Kaplan Family
Charitable Fund
James L. Long
Phyllis and Eli Katz
Darlene D. Lowe
Keen, Inc.
Mr. and Mrs. Hugh
Lowenstein
Tim McKay
Marianne and
Edward P. Petrosky
Angela and Paul McPhail
Leslie Peverall
Lower Shore Parkinson’s
Support Group
Charles H. McPherson, Sr.
Dr. Lincoln N. Pinsky
Kay and George Meadors
Robert J. Pilska
Mr. and Mrs. John T. Mendel
Larry Plocheck
Mid Cities Jewish
Community Center
John D. Pope
Patricia Keenan
The Kerler Family Gift Fund
The Kinetics Foundation
Arnold S. Kling
James T. Knowles
Michael A. Kolodny
Savas Konstantinides
Estate of Roman Kowalski
John W. Kozyak and
Barbara Silverman
Jackie Kropman
Jane P. Long Fund
Jack MacAllister
Magnakron Corporation
Kristin Maguire
Allan Maier
Bernard Malberg, MD
John Jay Mann Foundation
Janet L. and David
Mannheim
Wayne F. Miller
Lisa Orberg
Fayga and Elliot Press
Advised Fund
Miller Realty Family
Philanthropic Fund
Lawrence Puckett
William D. Minaghan
Quad Partners LLC
Rocco V. Pugliese
Alan B. Mirken
14
ANNUAL REPORT | 2013
Rand-Hager Family
Charitable Fund
Dr. and Mrs. Martin
Schechter
The Diane F. Stephens
2004 Charitable Trust
Yuchun Wang
RCL Fund of The Greater
Cincinnati Foundation
Mr. and Mrs. Don Schneider
Jennifer Stettner
Steven D. Watts
Schoenstadt Family
Foundation
Audrey and John Stratman
The Weeden Foundation
Nancy Sully
Blair W. Schultz
Mardell L. and Paul Remick
Jeff Sultan
Edward L. and Sheila
Rabb Weidenfeld
Gloria M. Scott
Cheryl Remmert
Estate of Vera Sunday
Edward M. Weil
Elizabeth Scrivner
Richard Family
Foundation, Inc.
Franklin Surnamer
Estate of Norman Wexler
Hermina and Ronald Seiden
Svoboda, Collins
Management LLC
Dr. Jessica White and Mr.
Christopher White
Sharron G. Reiss
and Mike Miller
Kirk B. Richardson
Honorable Patricia A. Seitz
and Mr. Alan G. Greer
William F. Ringier
James Syltie
Michael Wilderman
Heidi Shafranek
River Terminal
Development Company
Mark A. Tancil
John I. Williams, Jr.
The Shanken Family
Foundation
Tate Enterprises
Elizabeth R. Williams Trust
Roasters Deli
Enterprises, Inc.
Ronald Sherman
Troy W. Tegeler
Robert F. Williams Trust
Templeton Family Fund
Anthony L. Wilner
Michael Thiel
Sherryl A. Woods
The James and Patricia
Tolley Charitable Gift Fund
Phyllis I. Wormwood Fund
Virginia C. Simmons
Trukenbrod Family
Foundation
Warren Single
Marilyn and Richard
Wurzburger
Trustmark National Bank
Carl Singmaster
Donald G. Wylin
Tubular Textile
Machinery, Inc.
Steve Yonker
Teresa K. Rogers
Gerry and Robert R.
Rosenberg
Ellen R. Rosenthal
The Rosie’s Charitable Fund
Maureen F. and Paul H.
Roskoph Philanthropic Fund
Regina M. Rubenstein
Barbara and Michael
Sherman
Anne N. Sherr
SHURE, Inc.
Paul G. Smith
Edward W. Smith, Jr.
Foundation
Betty and John W. Turner
Martin H. Snitzer
Carol and Nelson Soggs
United Way Of Central
Maryland
The Solana At Cinco Ranch
University of Toledo
Thomas A. Ryan
Diane and Eric F. Sombers
Marcello Vaccaro
Sackets Harbor Parkinson’s
Action Committee
Jim Soong
Paul Spandikow
Whitney and Russell
Van Nuis
Hellyn L. Sarek
Peggy and John H. Speaker
W. S. Scharff Family
Foundation
SPX Foundation
Liz Schaub
Simon Stanaway
Arthur Rubin
The Helena Rubinstein
Philanthropic Fund
M. Jacki and Jim Rupert
David H. Rutchik
Sylvia M. Stafford
Jerry N. Steinbaum
15
Ira D. Warner
WHATEVER IT TAKES to Beat Parkinson’s®
Richard H. Tyler
Trust of Patience A.
Van Peenan
Thomas A. Verrill
Milton and Miriam
Waldbaum Family
Foundation
Polly P. Wright
Tim Zeller
Zissu Family Foundation
Lynn and Donald Zucker
Matthew Zucker
Eleanor and Leo Zucker
Family Foundation
Zynga.org
Legacy society members are a select group of donors
who have recognized the National Parkinson Foundation
in their wills, trusts, estates and other planned gifts.
Their generosity and forethought will help thousands
of Parkinson’s patients live better lives in the years to come. We would like to recognize the following Legacy Society members:
NATIONAL PARKINSON FOUNDATION
LEGACY SOCIETY
E. Richard and
Meme Alhadeff
Jean Bressler
Esther Danielson
Yetta Kaemmer
Leo M. Amoroso
Maida Burka
Mary Dexter
Barry Kaye
Tom Campbell
Mary Jean Elioff
Heinrich E. Kolbel
Lewis F. and
Mildred E. Collier
James A. Enloe, Sr.
Marjorie R. Korach
Richard and
Susan Comeau
Alvin Gardner
Hanes Lassiter
Dr. Moses and
Beatrice Goodman
Fund
Dorothy Marienau
Helen C. Avchin
Eugene M. Bane
Charitable Trust
Wendy and A. Jeffrey
Barash
Virginia C. Barrett
Robert A. M.
Coppenrath
Ben Berkowitz
Deloris T. Crews
Leonard Bielski
Thomas Curtis
Connie Bierlein
Burke and Rena
Dambly
Deborah L. Boyer
Erna Mayer
James & Marie
McCurdy Family
Charitable Trust
Genie B. Hollen
Ida Hutzler
Charitable Trust
John McConeghy
Edward Jervey
Karen A. Moschetto
Rachel K. Johnson
Anna Nalbandian
Kimrey and
Beverly Newlin
Ruth Orfield
Margaret Paul
Anne Romanello
Kim and Susan
Schrotenboer
Centre Unversaw
Miguel Vargas
Dorothy Vaughn
Michael L.
& Antoinette
H. Wilkerson
Every year, our Team Hope members take
the lead in creating unique ways to build
awareness of Parkinson’s disease and raise
funds for the National Parkinson Foundation.
The list below acknowledges the community fundraisers that took place between July 1, 2012 and June 30, 2013. We would like to
extend our sincerest gratitude for their creativity, energy and commitment.
NATIONAL PARKINSON FOUNDATION
TEAM HOPE FUNDRAISERS
Dixie Exterminating
Company, Inc.
Michelle Kravat
Melissa Phillips
Premier Beverage
Bay Area Golf for
Parkinson’s
Berry Dunn
P.D. Love
Elliot Lowenthal
Pura Vida Bracelets
Body In Balance
Physical Therapy
LLC
Flat Creek Baptist
Church
Lubeck Community
Baptist Church
Heidi Rosenberg
Allen Home Care
Megan Bateman
Seth Dunn
Kristen Maguire
Madison Brown
Fountain City
Wesleyan Church
Kevin Burkart
Foutty & Foutty, LLP
Amy Cantu
Garden of Life LLC
Suzanne Castor
Brice Holland
Catch The Cure
Norman Hunneyman
Church Pension
Group Services Corp.
Allison Kallevig
Linda Cibula
Keenan Antiques
Sarah Nedde
John D. Kelly III
Memorial Logan
House 5K
Network For Good
New Haven
Elementary School
Kids Play
For Good LLC
Michael Pearson
Danielle Classey
Aaron Cohn
Kimberly
Curtis-Scheer
Eric Kaplan
Saint Matthew
Catholic Church
Chris and
Megan Tidmore
Upson-Lee
High School
Vanderbilt University
Medical Center
Virginia Farm Bureau
Mutual Insurance
Debbie and
Alexandra Marsek
Sarah Schramm
McKeen &
Associates, P.C.
John Swartz
Washington Lake
Combined Charities
Tiana Tallant
White & Case, LLP
The Johnson
Chamber of
Commerce
Willard Public
Library
Mer Rouge
Community Chest
Katie Meyers
Jim Morris
Donna Smith
Matthew Wukovitz
Thurmont Middle
School
Donna Peterson
16
CHAAPTER SERVICE
PUBLIC EDUCATION
FINANCIAL HIGHLIGHTS
RESEARCH
EXPENSES BY CATEGORY
2012-2013
Interest | income
& Realized Gain
PATIENT CARE SERV
As illustrated below, the National Parkinson Foundation directed 74% of its 2012–2013 spending
on mission-related activities and 26% on fundraising and management combined.
Chapter Services
17% | $ 1,308,362
Public Education
29% | $ 2,261,109
Total Operating Expenses
100.0% | $ 10,691,552
Patient Care
Services
39% | $ 3,063,313
Research
15% | $ 1,217,968
Subtotal Mission-Related
73.5% | $ 7,850,752
Interest Income
Fundraising
Special Events
18.0% | $ 1,929,693
General & Administration
Legacies and bequests
8.5% | $ 911,107
Private and Corporate
REVENUES BY CATEGORY | 2012-2013
Special Events
1% | $ 103,520
Interest Income
& Realized Gains
7% | $ 665,129
Total Revenue
$
9,950,829
Legacies
& Bequests
33% | $ 3,256,678
Private &
Corporate
59% | $ 5,925,502
17 WHATEVER IT TAKES to Beat Parkinson’s®
Total Year-End Assets
$ 17,106,602
ANNUAL REPORT | 2013
INDEPENDENT AUDITOR’S REPORT
To the Board of Directors
National Parkinson Foundation, Inc.
We have audited the accompanying financial statements of National Parkinson Foundation, Inc. (the
“Foundation”), which comprise the statements of financial position as of June 30, 2013 and 2012, and
the related statements of activities, functional expenses and cash flows for the years then ended, and
the related notes to the financial statements.
Management’s Responsibility for the Financial Statements
Management is responsible for the preparation and fair presentation of these financial statements in
accordance with accounting principles generally accepted in the United States of America; this includes
the design, implementation, and maintenance of internal control relevant to the preparation and fair
presentation of financial statements that are free from material misstatement, whether due to fraud or
error.
Auditor’s Responsibility
Our responsibility is to express an opinion on these financial statements based on our audits. We
conducted our audits in accordance with auditing standards generally accepted in the United States of
America. Those standards require that we plan and perform the audit to obtain reasonable assurance
about whether the financial statements are free from material misstatement.
An audit involves performing procedures to obtain audit evidence about the amounts and disclosures in
the financial statements. The procedures selected depend on the auditor’s judgment, including the
assessment of the risks of material misstatement of the financial statements, whether due to fraud or
error. In making those risk assessments, the auditor considers internal control relevant to the entity’s
preparation and fair presentation of the financial statements in order to design audit procedures that are
appropriate in the circumstances, but not for the purpose of expressing an opinion on the effectiveness
of the entity’s internal control. Accordingly, we express no such opinion. An audit also includes
evaluating the appropriateness of accounting policies used and the reasonableness of significant
accounting estimates made by management, as well as evaluating the overall presentation of the
financial statements.
We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for
our audit opinion.
Opinion
In our opinion, the financial statements referred to above present fairly, in all material respects, the
financial position of the Foundation as of June 30, 2013 and 2012, and the changes in its net assets
and its cash flows for the years then ended in accordance with accounting principles generally
accepted in the United States of America.
Ft. Lauderdale, Florida
September 10, 2013
An Independent Member of Baker Tilly International
MIAMI 1001 Brickell Bay Drive, 9th Floor, Miami FL 33131 | T 305 373 5500 F 305 373 0056 | www.mbafcpa.com
FORT LAUDERDALE 301 East Las Olas Boulevard, 4th Floor, Fort Lauderdale, FL 33301 | T 954 760 9000 F 954 760 4465
18
NPF BOARD OF DIRECTORS
The National Parkinson Foundation is privleged to have an outstanding and dedicated group of
volunteers who generously donate their time and talents by serving on the NPF Board of Directors.
Without their selfless efforts, the work of the foundation would not be possible.
OFFICERS
MEMBERS
EMERITUS BOARD
John W. Kozyak, Esq.*
Chairman of the Board
Daniel Arty, CPA*
Edythe Kay-Marsa
A. Jeffrey Barash, Esq.
Bernard J. Fogel, MD*
Past Chairman
J. Gordon Beckham, Jr.
Harold P. Kravitz, Esq.*
President Emeritus
Paul F. Oreffice*
Chairman Emeritus
Carmen Y. Cartaya, Esq.*
Andrew B. Albert*
Vice Chairman
E. Richard Alhadeff, Esq.*
Vice Chairman, Secretary
Martin L. Solomon*
Treasurer
Marshall R. Burack, Esq.
Jo Ann Pepper Oreffice
Robert H. Traurig, Esq.
Patricia de Stacy Harrison
Alessandro Di Rocco, MD
Harold P. Kravitz, Esq.*
President Emeritus
Honorable Shelley J. Kravitz
Timothy Martorella
Gail Milhous
Roberto Palenzuela
Katharine F. Roberts
Alan M. Slewett
Enrique J. Sosa, PhD*
Senator Paul B. Steinberg, Esq.
Bruce Wisnicki*
*M
ember of the Executive Committee
19
ANNUAL REPORT | 2013
SENIOR PROFESSIONALS
Joyce A. Oberdorf
Leilani Pearl
President and
Chief Executive Officer
Vice President,
Marketing and Communications
Michael S. Okun, MD
Peter Schmidt, PhD
National Medical Director
Vice President, Research and Professional
Programs, Chief Information Officer
Ariel Y. Deutch, PhD
Chair, Clinical & Scientific
Advisory Board
Jill Davidson
Vice President,
Finance & Administration
Darcy Taylor
Vice President,
Constituent Relations
Jorge Zamudio, MD
Senior Director,
Patient Services
Amy Gray
Robert G. Shaw
Vice President, Chapter Relations
and Community Partnerships
Senior Director,
National Signature Events
WHATEVER IT TAKES to Beat Parkinson’s®
20
ANNUAL REPORT | 2013
PEOPLE WHO MOVE
CHANGE THE WORLD.
JOIN MOVING DAY®,
Taking place in cities across the United States,
A WALK FOR PARKINSON’S!
Moving Day® is your chance
to speak up about Parkinson’s disease and move others to take
action. It is a movement for change — towards more awareness,
more funding, and more understanding of a disease that affects
so many of our family and friends. Every move you make and
every penny you raise brings us closer to beating Parkinson’s!
Find a Moving Day® walk near you at www.npfmovingday.org.
21
WHATEVER IT TAKES to Beat Parkinson’s®
SH O P O NLI NE A T W W W . P A R K I NSO N. O RG / S T O RE
The Whatever It Takes to Beat Parkinson’s campaign is a national symbol
for living well with Parkinson’s; it highlights the many ways that you can
fight the disease. Show your support for NPF and learn how to beat
Parkinson’s at the same time with our new line of custom merchandise.
Learn more about the campaign at www.parkinson.org/whateverittakes.
22
ENGAGE
with the Parkinson’s community and
the National Parkinson Foundation on social media.
200 S.E. First Street, Suite 800, Miami, FL 33131 800.4PD.INFO (473-4636)
www.parkinson.org