2010 - National Alopecia Areata Foundation
Transcription
2010 - National Alopecia Areata Foundation
INVESTIGATE HOPE DISCOVER The nation’s leading nonprofit watchdog group, the BBB Wise Giving Alliance, has found that NAAF operates with the utmost integrity, transparency, and accountability. NAAF is proud to be one of the few nonprofits out of the almost 1.5 million nonprofits in the United States that meets these strict standards. In addition NAAF meets all 44 of the standards required for membership in the National Health Council. Dear Friends, We begin this annual letter to you by highlighting the most exciting discovery in the history of alopecia areata. The National Alopecia Areata Foundation (NAAF) used your generous donations to INVESTIGATE every possible avenue that might lead to a breakthrough in the understanding and treatment of this disease, and after 13 years of investments in genetics research, we DISCOVER there are eight genes related to alopecia areata. These same genes are associated with many other autoimmune diseases. Through our research program, NAAF has given HOPE to generations of people affected by alopecia areata. Scientists throughout the world know about this finding since it was published in the prestigious medical journal, Nature. Medical professionals, including dermatologists, have contacted NAAF to praise us regarding this INVESTIGATE HOPE DISCOVER discovery. Patients and families who have supported NAAF for many years know that their commitment has been worthwhile. At the same time, we all realize we must continue to take steps toward the next discovery in our quest to find an effective treatment and end to this disease. While we celebrate this breakthrough in research, we also want to remember the other two parts of our mission—awareness and support—which are so important for people living today with alopecia areata. Through our support network, the National Alopecia Areata Foundation makes a difference in the lives of those families and individuals. We continue to investigate and discover new ways of helping people. We offer hope on a daily basis through our website, message boards and social media, informational materials, DVDs, electronic and print newsletters, the Ascot Fund, and the Alopecia Areata Marketplace. The National Alopecia Areata Foundation strives to communicate the facts about alopecia areata to as many people as possible. Each day we discover new ways to reach more people. Through awareness and advocacy programs we educate the community so that they, in turn, are more compassionate and considerate of people with alopecia areata. We thank NBA player Charlie Villanueva and Miss Delaware, Kayla Martell, who promote awareness through their appearances. We thank you again for your support. We hope you are pleased with the report of activities and accomplishments from 2010. Brian Ter Haar, Vicki Kalabokes Chair, Board of Directors, 2011 President and Chief Executive Officer “We came to the NAAF Conference INVESTIGATE HOPE The National Alopecia Areata Foundation 2010 Annual Report 1 DISCOVER looking for a cure. When you are sitting with others, look to each side and forward and back. That is where the cure is.” — Howard Kaplan and Ernest Guenzburger “When our son saw others who had alopecia areata who got it as children who are now doctors, lawyers and emcees he became empowered.” — Phil Maniscalco SUPPORT: People DISCOVER every day that the National Alopecia Areata Foundation offers the Emotional Cure through its Support Network. x in Indianapolis, Indiana, in the summer of 2010, drawing 655 the participants from 32 states and 3 foreign countries. The confer- conference was at the airport going ence is the key to all of NAAF’s support efforts, empowering home on Sunday. He was telling me those affected by alopecia areata to raise awareness and help was going to keep in touch with them. The difference in this kid from the first day to the last was just amazing others in their own communities. x 86 Conference Scholarships were awarded to people in need, and so noticeable. He was in line pointing to his mom enabling them to attend the conference. A total of 1,121 schol- all the other alopecians in the security line. I could tell arships have been awarded since the inception of our confer- he knew that he was not alone and it made all the ence scholarship program. difference for him. You guys are doing God’s work at NAAF, you really are.” x 414 people have been aided by grants from this fund since it was established in 2004. x Our Children’s Conference Camp, which has been held in family, friends, and schoolmates; a school packet for use by parents and teachers; a NAAF bibliography of books for kids with alopecia areata; children’s supports groups; our Children’s Conference Camp; our Pen Pals program; secure and private message boards for children and teens; a special KidNet section of the NAAF Newsletter; and brochures for both kids and their parents. x their daily life. It now features 54 different merchants. The variety and quality of the products are exceptional. x best meeting ever and I just wanted to say thank you. You have no idea what you have done for so many people’s x We continue to expand NAAF’s website to serve you better. It is more interactive to help more people in real time. x We have hosted NAAF Webinars to educate everyone on topics you have requested such as Advocacy, Research, and Children lives. Thank you from the bottom of my heart for giving me this opportunity to provide a Returning to School. Our most popular Webinar last year fea- safe place for so many people that are suffering.” tured Dr. Christiano reporting on her genetic findings. — Margaret Staib, Long Island, New York Support Group Leader “It takes profound insight and wisdom x and providing telephone support. NAAF has started highlight- x to know that how you deal with being ‘you’ affects everyone around you, even strangers.” — Georgia Roberts NAAF s Facebook and Twitter pages encourage even more interaction among our alopecia areata family. x ing its support volunteers in each quarterly newsletter. x The Ascot Fund provided financial grants to 65 men, women, and children so they could purchase hair prostheses. These Our Pen Pal program now has over 1,300 participants, including adults as well as children. x NAAF responds to thousands of emails, phone calls, and fax requests for information. x NAAF is able to help more people because of the help we receive from thousands of volunteers nationwide and interna- Our NAAF Electronic News (Beneath the Surface) quickly conveys important information to everyone. Our International Support Network includes 130 loyal volunteers in 111 cities worldwide, organizing local support groups dren and teens. “Our support group meeting was the The Alopecia Areata Marketplace helps people with alopecia areata access hard-to-find and much-needed products to ease tandem with the patient conference since 1988, drew 225 chil- — Matt Kelley Alopecia areata kids have many NAAF resources to help them! We offer a nine-minute DVD/video that kids can share with NAAF held its 25th Annual International Patient Conference “A young boy I met on the first day of how he made so many new friends and grants truly make a difference in the lives of people. A total of tionally. x Our quarterly award-winning NAAF Newsletter continues to be recognized as a model for patient newsletters. x Our NAAF brochures continue to help those with alopecia areata and educate the public. 2 The National Alopecia Areata Foundation 2010 Annual Report AWARENESS: “I feel when you educate and make others feel comfortable about alopecia areata by talking about People DISCOVER every day what alopecia areata is and its effects on people through National Alopecia Areata Foundation’s awareness efforts especially our grassroots volunteers around the world. x it openly it helps avoid misunderstandings and promotes awareness.” — Maritza Stern “Beauty comes in all different kinds of packages. You can be a beauty queen and not have hair.” — Kayla Martell “I see alopecia areata as the coolest Kayla Martell has been a spokesperson for NAAF. She was disease ever because it’s not deadly, crowned Miss Delaware, and the National Alopecia Areata Foundation was chosen as her platform to promote alopecia new kids with alopecia areata too and areata awareness. We had millions of media impressions from laboration. you get to meet the coolest basketball the numerous media outlets that covered her reign as Miss x x x NAAF publicity efforts generated over 80 print, television, and player ever . . . Charlie Villanueva.” — A NAAF Kid Delaware. She eventually advanced to the top ten in the Miss web media publications with millions of media impressions American Pageant. We are so proud of her! during 2010. This included coverage on CBS News, Fox News, “I fought my insurance company for six months and Kristen Wells, host of HGTV’s Smart Fix has also been a spokes- ABC News, the Today show, The New York Times, The Huffington I won! A small victory, yet an important one. Insurance person for NAAF. Kristen contacted NAAF with a burning de- Post, USA Today, Los Angeles Times, WebMD, AARP Bulletin, Skin companies need to know that alopecia areata is an sire to give back. She wants to add HOPE because her hair did and Allergy News, and Fox News Latino. [Rosalie, please scan autoimmune disease, it is a real disease, it affects people grow back and she has been patch-free ever since. some of the articles given to you] NBA player Charlie Villanueva continues to “Meet & Greet” and x Over 500 NAAF Conference participants attended an Indianap- inspire children and adults affected by alopecia areata, but olis Indians Minor League baseball game to raise awareness of Charlie says the reverse is true: he says these Meet & Greets alopecia areata and cheer on Harrison Goldberg, who threw really inspire him. The Charlie’s Angels Program has had over the ceremonial first pitch. 4,500 children and adults participate during the past five x you get to go to conferences, meet among the people featured. This was a very productive col- x The Tortoise & Hair™ run/walk is growing into NAAF’s premier years. nationwide awareness and fundraising event. Held during our NAAF and the National Coalition of Autoimmune Patient annual patient conference in Indianapolis, this event drew Groups (NCAPG) worked together to produce two video Pub- over 470 runners and raised over $20,000. lic Service Announcements (PSAs), one for all autoimmune diseases and one for alopecia areata. Charlie Villanueva was x Volunteers like Heidi Bratt in Massachusetts continue to fight at the state level for insurance coverage for alopecia areata. greatly, and that people with alopecia areata have the right to recognition and treatment.” — Cynthia Klein INVESTIGATE HOPE DISCOVER x x CALIFORNIA KENTUCKY NORTH CAROLINA the Federal level. Jillian Halloran Family & Friends Kelly Fineman Family & Friends Alexandra Dest Family & Friends NAAF volunteers hosted fundraising and aware- Trish Kotal Family & Friends Ruthy Mayfield Family & Friends Samuel Lanning Family & Friends ness events around the world, generating almost Friends at Luso-American Life Insurance LOUISIANA OHIO $223,400 for NAAF. All of these events are listed by Friends of the Marin Human Race Abby Ter Haar Family & Friends Sara Kluener Family & Friends state or province in this annual report. We offer our San Francisco Support Group MARYLAND Paige Collins Family & Friends CONNECTICUT Mark Sayan Family & Friends PENNSYLVANIA Connecticut Support Group MASSACHUSETTS Beth Breslow Family & Friends Adriene & Robert Guerin Family & Friends Friends of Westminster Nikola Cao Family & Friends ed—or participated in—these fantastic events! NAAF now has an official song: “Bald is Best” by Tyree Glenn Jr, the ambassador of Rhythm and Blues. The song gets everyone dancing and singing. Tyree Glenn Jr. has over 20 years of experience on New York’s Broadway, concert tours, and television and radio shows in Italy, Portugal, England, and Germany. x x 3 NAAF GRATEFULLY ACKNOWLEDGES ALL OF THE AWESOME INDIVIDUALS AND FAMILIES THAT RAISED MONEY AND SPREAD AWARENESS ON OUR BEHALF DURING 2010. TOTAL RAISED: $223,400! NAAF continued its fight for insurance coverage on thanks to all the individuals and families who host- x The National Alopecia Areata Foundation 2010 Annual Report Holly McDonald’s Family & Friends Jacob Offir Family & Friends Katy Swede-Taillon Family & Friends DELAWARE Deborah Pellicano Family & Friends Elementary School MICHIGAN Mallory Crowner Friends & Family Cassie McElwain Family & Friends MISSOURI Friends of Hallowell Elementary School Diane Gormley Family & Friends Friends of the Philadelphia, PA Support Group Emma Robbins Family & Friends Friends of the Philadephia 76’ers NAAF, working with the Coalition FLORIDA of Skin Diseases, has continued Amish & Berna Parikh Family & Friends to advocate for the importance of ILLINOIS Tom & Laura Conklin Family & Friends skin disease research so that all skin diseases in the Ken & Jennifer Anderson Family & Friends Liliana Hakim Family & Friends coalition benefit. Baumgart/Beckman Family & Friends Christopher Passarella Family & Friends NAAF takes a very active role in educating Rogers Elementary School Carole Rogers Family & Friends medical professionals about alopecia areata, host- INDIANA ing informational exhibits at key medical and NEW YORK Friends of Northwood Elementary School scientific conferences, including the American Harrison Goldberg Family & Friends Olivia Rusk Family & Friends Academy of Dermatology, the Dermatology Nurses’ Jack Keogh Family & Friends NAAF Supporters of Tortoise & HairTM Lord & Taylor Do Good Campaign VIRGINIA Erica Meilhede Family & Friends Jeff & Sherene Gravatte Family & Friends IOWA Friends of Northside School WISCONSIN Friends of Aplington/ Friends of Reuben Gittelman Kaycee & Kiah Lang Family & Friends Hebrew Day School Friends of Wedgewood Park School Association, the Society for Investigative Dermatology, and the American Academy of Pediatrics. Indianapolis Parkersburg School District Michelle & Kurt Busse Family & Friends NEW JERSEY SOUTH CAROLINA Cindy Bondio Family & Friends TENNESSEE Shannon O’Neill Family & Friends TEXAS Jose Charqueno Family & Friends Manuel Espino Family & Friends Michael & Lise Maddux Family & Friends 4 The National Alopecia Areata Foundation 2010 Annual Report INVESTIGATE HOPE DISCOVER “Thank you so much for the email about Dr. Christiano’s discovery of the RESEARCH: genes implicated in alopecia areata The National Alopecia Areata Foundation spends a tremendous amount of its resources to INVESTIGATE alopecia areata to DISCOVER as much scientific knowledge as possible and to give HOPE to all those affected by alopecia areata. x and the publicity. I understand there is no cure yet but this puts HOPE in the hearts of millions.” — Shawn Lintz “Finally we have the possibility of developing drugs that specifically target the mechanism behind the disease.” — Angela Christiano, PhD NAAF’s funding of Dr. Angela Christiano at Columbia University “Dr. Christiano has definitely been working on this for over the past 13 years has paid off with the discovery of eight a very long time. I’m glad her research is finally bearing genes that contribute to alopecia areata, one of which has a pos- fruit. Dedication like hers is rare.” sible role in the onset of the disease. Many of the genes found to — Nick Kypriotakis be associated with alopecia areata are also associated with other “Thank you very much for such interesting news, which autoimmune diseases with pre-existing treatments. This discovery give us additional hopes of attaining our targets is expected to lead to effective clinical trials. NAAF thanks the against alopecia areata.” National Institutes of Arthritis and Musculoskeletal and Skin Dis- — Jorge Sralegui Gil eases (NIAMS) for continuing Dr. Christiano’s studies and award“Wow, this is what I have been ing her the resources to be able to make this discovery. x waiting for! As an immunologist who NAAF has now initiated an Alopecia Areata Treatment Develop- has been following the research in the ment Program to find a successful treatment as rapidly as pos- field of alopecia areata for over sible. This program, which is a direct result of recommendations The program focuses our efforts in two directions: Basic from the Alopecia Areata Immunology Summit and Dr. Christia- Immunology Research to find a treatment in the long term no’s discoveries is strategic and focused. We know exactly what and Clinical Studies to find a treatment in the short term, the NAAF conference in 2010. The rigorous population we need to do to accomplish our goals. We have a comprehensive NAAF acts much like a concierge, bringing together players genetics data derived from the National Alopecia budget and timeline. from science, industry, government and patients to find a Areata Registry provides the focus for new targeted treatment. immunologic, therapeutic and clinical studies.” 25 years, it was enlightening to hear the results of the work presented by Dr. Christiano at —Howard B. Fleit, PhD. The National Alopecia Areata Foundation 2010 Annual Report BASIC IMMUNOLOGY RESEARCH: , 2. Yehuda Shoenfeld, MD, FRCP is also studying infectious 6. 5 NAAF is pursuing Quality of Life Studies so NAAF has funded two research grants in Basic Immunology agents in alopecia areata. Shoenfeld is head of the Department we will be prepared to appear before the Food and Drug to date—one to find the autoantibodies involved in alopecia of Medicine B and the Zabludowicz Center for Autoimmune Administration if we are successful in finding a viable areata and another to determine if infectious agents are Diseases at Sheba Medical Center (affiliated with Tel-Aviv treatment. involved. These studies are ongoing and should be completed University) in Israel and Incumbent of the Laura Schwarz-Kipp in late 2011. Chair for Research of Autoimmune Diseases on the Sackler studies to present to the Food and Drug 1. The George Eisenbarth Laboratory, located in the Barbara Faculty of Medicine at Tel-Aviv University, Israel. Administration. Davis Center for Childhood Diabetes at the University of An increased prevalence of celiac autoantibodies has been Colorado Denver School of Medicine, is a found in the sera of alopecia universalis patients compared cations to the National Institutes of Health so there aren’t state-of-the-art facility focused on researching the immunology to controls. They suggest an association between anti-celiac competing applications. and autoimmunity of Type 1 Diabetes. We believe we can antibodies and anti-TPO with alopecia universalis and patchy benefit from all the advances and technology the diabetes alopecia areata. The exact role of these autoantibodies and their community has invested in studying their disease to learn more biomarkers involved in alopecia areata to advance the clini- associations with different forms of alopecia areata and other about our own. cal studies. autoimmune diseases will continue to be studied. NAAF is funding Dr. Li Zhang, a postdoctoral fellow in the Eisenbarth Laboratory, to Develop Molecular Assays for Alopecia Areata–Associated Autoantibodies. specific target that the immune response is attacking. urging and funded by the National Institute of Arthritis and vince companies that there is a market for drugs that may Musculoskeletal and Skin Diseases of the National Institutes be able to be used to treat alopecia areata. of Health. Dr. Christiano used 1,054 samples from the Reg- NAAF funded a grant to Dr. Jenna O’Neill at Wake Forest istry for her important discoveries. We hope to change the University to research the 235 drugs being developed for Registry’s name to the Alopecia Areata Clinical Trials Regis- other autoimmune diseases and to produce a spreadsheet try since it will become a major part of the Alopecia Areata of all pertinent information, including what stage of study Treatment Development Program. 2. the drug is in. to bind and target. T-cell receptors are located on the surface of 3. tack. In alopecia areata, it appears that specific T cells are attack4. Once antibody specificities are identified in alopecia 5. By the end of 2010, over 9,000 people had completed the NAAF held an Alopecia Areata Clinical Summit to set priori- initial registration questionnaire. Over 3,100 of these people ties to advance clinical studies of alopecia areata. had also completed the second phase of registration, provid- NAAF is negotiating with several companies to partner on ing blood samples and undergoing a medical exam. The more clinical studies. people we have in the registry, the more we learn about alope- NAAF is coordinating investigators to develop a uniform pecia areata will be designed, and studies on T-cell specificities protocol for alopecia areata clinical will be organized to determine if T cells share the same specifici- studies. ties as antibodies. NAAF has spent the year preparing to take over the National NAAF has formed the Corporate Leadership Council to con- teins that circulate through the body, seeking foreign antigens areata, additional studies on the role of these antibodies in alo- x NAAF is pursuing the publication of the 1. either antibodies or T-cell receptors. Antibodies are soluble pro- ing specific antigens in the hair follicle. 9. NAAF is coordinating alopecia areata–related grant appli- Alopecia Areata Registry, which was established at NAAF’s The specificity of the immune response is determined by T cells, which migrate through the body seeking antigens to at- 8. NAAF is also pursuing current prevalence and incidence CLINICAL STUDIES: Much autoimmunity research now focuses on discovering the specificity of the immune response—in other words, the 7. cia areata and the more clues we gain to find a possible cure. 6 The National Alopecia Areata Foundation 2010 Annual Report HOPE INVESTIGATE DISCOVER STATEMENT OF ACTIVITIES FOR THE YEAR ENDED DECEMBER 31, 2010 Unrestricted REVENUES Donations—general $428,969 Donations—stock and major donors 449,984 Restricted grants and donations Conference 168,605 Special events—Links for Locks and Tortoise & HairTM 56,995 Prior year grant reimbursements 12,702 Awareness campaign 130,485 Newsletter income 12,550 Alopecia Areata Marketplace 6,339 Brochures and videos 816 Interest and dividend income 13,320 Net realized and unrealized gains (losses) on marketable securities 45,479 Net assets released from restrictions 92,093 Total revenues 1,418,337 Temporarily Restricted $ 2010 Total 56,482 650 $428,969 449,984 56,482 169,255 7,254 19,000 - 56,995 12,702 137,739 31,550 6,339 816 13,320 (92,093) 45,479 - (8,707) 1,409,630 STATEMENT OF FINANCIAL POSITION December 31, 2010 ASSETS 2010 Current assets Cash and cash equivalents $ 693,226 Marketable securities 417,146 Accounts receivable 14,308 Prepaid expenses and other current assets 77,676 Total current assets 1,202,356 Fixed assets, net of accumulated depreciation 8,079 Total assets LIABILITIES AND NET ASSETS Current liabilities Accounts payable Accrued vacation payable Total current liabilities Net assets: Unrestricted Temporarily restricted Total net assets $1,210,435 Total liabilities and net assets INCOME FOR FISCAL YEARS 1981-2010 EXPENSES Program services Research Education and support Support services: Fundraising Management and general Total expenses 1,152,136 35,174 1,187,310 $1,210,435 80% PROGRAM Support, Research and Awareness 1,400,000 2009 Total 11,648 11,477 23,125 SPENDING PRECENTAGE 1,450,000 Temporarily Restricted $ 1,550,000 1,500,000 Unrestricted 2010 1,350,000 1,300,000 1,250,000 1,200,000 1,150,000 1,100,000 187,484 815,906 - 187,484 815,906 1,050,000 1,000,000 950,000 900,000 850,000 166,396 83,294 - 166,396 83,294 1,253,080 - 1,253,080 800,000 750,000 700,000 650,000 600,000 550,000 500,000 450,000 Change in net assets Net assets, beginning of period 165,257 986,879 (8,707) 43,881 156,550 1,030,760 400,000 350,000 300,000 250,000 150,000 100,000 13% FUNDRAISING 2009 2010 2008 2007 2005 2006 2003 2004 2001 2002 1999 2000 1998 1997 1995 1996 1993 1994 1991 1992 1989 1990 1988 1987 1985 1986 50,000 1983 The Statement of Financial Position of the National Alopecia Areata Foundation as of December 31, 2010, was audited by R. J. Riccardi, Certified Public Accountant. A copy of the complete report, including notes, is available for public review from the National Alopecia Areata Foundation, 14 Mitchell Boulevard, San Rafael, CA 94903 or on the website www.naaf.org. 200,000 1984 $35,174 $1,187,310 1981 $1,152,136 1982 Net assets, end of period 7% MANAGEMENT The National Alopecia Areata Foundation 2010 Annual Report NAAF DONORS January 1, 2010 – December 31, 2010 & Robert O’Connor • Shannon O’Neill Family & Friends • Kate Paley • Marcia Rimai & Daryl Diesing • Dr. Joseph & Patricia Russ • William H. Soskin • Bonnie & Scott Stern Businesses IBM, Endicott, NY • Lord & Taylor, Wilkes-Barre, PA • McDonald’s, Baton Rouge, LA • Procter & Gamble Company, Cincinnati, OH • Taglich Brothers, Huntington, NY Foundations and Organizations Editor’s note: Some of the donors listed raised all of the money for their donation, or a portion of it, by fundraising. Arkay Foundation, Pacific Grove, CA • Lexington Grange #2672, Alliance OH DIAMOND BENEFACTORS $50,000 AND ABOVE BENEFACTORS $1,000 TO $2,499 Anonymous • Harris & Helen Barer • Jeffrey & Ginny Kelter • Maureen McGettigan • Wendy & Brian Ter Haar • Herbert & Annabel Abrams • Nancy Polley Aibel • Dr. Rex & Johnnie Amonette • Robert Amter & Bonnie MacDonald • Ken & Jennifer Anderson Family & Friends • Cynthia & Woodbury Andrews • Karen Annis & Mike Dazy • Maria Beckett • Laura Bivins • Linda & Paul Brady • Peg & Ed Breslow • Susan & Steven Burlingame • Stephen & Christine Campbell • Helen & Victor Castillo • Elizabeth Catto • Mike & Janis Chapman • Angela Charqueno Family & Friends • Carl & Suzanne Chiappa • Lynne Cianciulli • Joseph & Patricia Combs • Connecticut Support Group • Jim & Marilyn Cook • Mallory & Michael Crowner Family & Friends • Patricia Davidson • Donovan & Patricia Davis • Karen & Michael Dermo • David & Lynn Dickens • Dr. Michael Domboski • Hope & Theresa Dyre Family & Friends • Patti & James Elliott • Jennifer Eplett & Sean Reilly • Deloris Erickson • Shaila & Karl Fernandes • Jim & Carla Flug • Sandy & Carlos Frum • Bobbie & James Gates • Dr. Marc Glashofer • Andrew & Eleanor Grant • Lisa & Julian Grant • Nora & Madison Grose • Daniel & Kathleen Groszkiewicz • Adriane & Robert Guerin • Joseph & Jean Hamilton • Earl & Kay Harbaugh • Debbie & Rich Harris • Joyce Hawkins • Kandace Hawkinson • Jian He • Virginia & David Hilyard • Despina & Brian Keegan • Peter & Karen Kensicki • Jack & Henry Keogh Family & Friends • Virginia & Robert Kirkwood • Linda & David Kolifrath • Sue & Gary Kostecki • Jeremy Kramer & Becca Davies • Robert & Judy Krischker • Dr. Gerald Krueger • Fred Levin & Leslie Dumont • Irving & Lenore Levine • Susan MacMillan • Peter & Debby Magowan • Stewart & Barbara Mandell • Terre Trumble Marshall • Marie & Thomas Mason • Nancy Matthews • Marie & Terrell McElheny • Stanley Michael • T J Morris • Michael & Christine Moscato • Rose & Henry Moskowitz • Kristen Mulberry • Larry Nathanson • Lesley Nettles • Robin & David Nijankin • Tom & Pam Nix • Robert & Frances Oshiro • Hays Owen • Kathy Pauli & John Eldred • Steven Perricone • Karen Peterik • Chris Pitsaroff • Craig & Amy Powell • Dr. Vera H. Price • Jane & Paul Rittmaster • Phyllis & Sidney Rodbell • Carol & Joel Rogers • Dr. Floreene Rubin • Jillene & Mark Ryan • Elio Salvo • Linda, Fred & Marc Sayan Family & Friends • Brian & Lynn Schaezler • Collins & Gail Seitz • Kim & Bill Snyder • Debbie Socks • Anita & Todd Solomon • Jerry & Janet Solomon • Philip Spinelli • Margaret & Andrew Staib • Dr. Timothy Stanford & Family • Michelle & Butch Stidham • Sandra & Bruce Swanson • Katy Swede-Taillon Family & Friends • Patty Tager & Rami Geffner • Robert, Holly & Nicole Tassin • Josh Tenuta • Ranjit Thaker • Eric & Lynsey Vinikoff Family & Friends • Bryant & Sharron Watts • Renee Weilmann • Thomas & Carolyn Werner • Melanie & Mark Whitmore • Darlene Wisecup • Ed & Mary Wojtowicz • Vincent Wong • Dr. John & Adelaide Zabriskie • Connie & Mark Zurcher Foundations and Organizations Estate of Robert D Desmond GOLD BENEFACTORS $25,000 TO $49,999 Jay & Peggy Bokulic • Margery & Rob Goldberg • Donna & Matt Hakim • Lilliana Hakim Family & Friends • Vicki Kalabokes • Abby Ter Haar Family & Friends Businesses Murray Hill Chiropractic, New York, NY Foundations and Organizations Heckscher Foundation for Children, New York, NY SILVER BENEFACTORS $10,000 TO $24,999 Anonymous • Caroline & David Brown • Paige Collins Family & Friends Family & Friends • Richard & Rosa Dest • Bernard & Cheryl Fineman • Dr. Gary Gordon & Marilyn Hirsch • Ann S. Hedges • Gwen & Hoy Lanning. Jr. • Samuel Lanning & Alexandra Dest Family & Friends • Alan & Kathy Pallie • Philadelphia, PA Support Group Family & Friends • Ray & Susan Simmons • Lawrence & Sandra Small Foundations and Organizations Laffey-McHugh Foundation, Wilmington, DE GRAND BENEFACTORS $5,000 TO $9,999 Beth & Stephen Breslow • Susan DeLagarza • Warren & Jinhong Deitch • Manny Espino Family & Friends • Robert & Ana Flint • Arlene & Richard Glenn • Judith Glick • Marcia Grimm • Philip & Peggy Holland • Tom & Sharon Kelley • Kaycee & Kiah Lang Family & Friends • Laurie, Randall & Cassie McElwain Family & Friends • Christopher Passarella Family & Friends • Debora & Luis Pellicano • Drs. Carol & Gary Ter Haar • Maxine & Jack Zarrow Businesses Downtown Chiropractic, New York, NY • E & J Gallo Winery, Modesto, CA • Johnson & Johnson, Morris Plains, NJ • Phyto/Ales Groupe, New York, NY Foundations and Organizations Maxine & Jack Zarrow Family Foundation, Tulsa, OK MAJOR BENEFACTORS $2,500 TO $4,999 Andrea & Robert Belford • Claire Chandler • Allison Dunlop • Thomas & Marian Gervasi • Jeffrey Goins • David & Ami Handler • Bruce & Rebecca Hollinger • Matt Kelley • Noel Kratzmann • Eugene & Shirley Levitt • Friends & Family of Ruthie Mayfield • Robert & Maureen McDonald • Jenna McNeil Family & Friends • Mindy Myers & Gary Hoover • Rita Businesses Baton Rouge Water Company, Baton Rouge, LA • C & K Healing Touch, New York, NY • CMH Flooring Products, Inc., Wadesboro, NC • Di Fazio Electric, Inc., Deer Park, NY • Galderma Laboratories, Ft. worth, TX • Horizon Wellness Group, Hicksville, NY • Iowa Dermatology Nurses Association, Ames, IA • Kahn Architecture & Design, New York, NY • Law Offices of Anthony C Donofrio, Massapequa, NY • Lifetime Physical Therapy, New York, NY • New Life Hair, LLC, Burr Ridge, IL • Patterson Companies, Inc., St. Paul, MN • True Silver Corp., Alan Thomas Designs, Pembroke Pines, FL • Wal-Mart, Fort Stockton, TX Foundations and Organizations Alben F Bates & Clara G Bates Foundation, Elmhurst, IL • Andrew T McMains Baton Rouge Area Foundation, Baton Rouge, LA • Catto Charitable Foundation, San Antonio, TX • The Drescher Foundation, Bethesda, MD • The Krischker Family Foundation, Phoenixville, PA • Northwestern Mutual Foundation, Milwaukee, WI SPONSORS $500 TO $999 Dr. Harry Agress, Jr. • Lindsay Allen • Barbara Amspoker • Tamara & Rick Baldini • David Bartash • John Barton • Nancy Black • Lindsay Boles • Charles & Teresa Boyer • Ray & Betsy Braun • Joyce Brehm • Margaret & Denis Brennan • Chris & Diane Brody • Aram & Heather Bronston • Michelle & Kurt Busse Family & Friends • Mara Caldwell • Vickie & John Camburn • Mary & Joseph Cilibrasi • Abraham Cohen • Leo Aflalo Cohen • Jill & Dan Cook • Dr. Anthony & Shirley Costrini • Dr. Willis Cottel • Denis Cuenca • Katherine Dalton • Ian & Matilda Dalziel • Robert DeSaulniers • Guerino & Julie Desimone • Dr. Richard Dosek • Needra Dulcich • Kathleen & Ed Edwards • Jennifer & John Fahey • Stephen & Jean Fey • Kelly Fineman Family & Friends • Luann Firestein • Lorraine Fowler • Brenden & Jennifer Garvey • Carol & William Gasser • Kathy & Lee Gause • Thomas E. Godfrey • Diane & Bob Goon • Andrea & Stephen Granet • Cleta Gray • Marcia & Jerry Gross • Ernest & Ellen Guenzburger • Christopher Hakim & Claire Fratello • Patty & Wayne Hall • Jillian Halloran Family & Friends • Barbara Hansen • Sally & Stephen Harr • Sylvia Heisman • Jack & Faye Herick • Alison Herman • Dr. Steven & Mary Hieronymus • Amy & Brian Hogan • David & Stephanie Honeycutt • Wayne & Cherie Hubbell • Paul & Patti Jablonski • Dawn Jeffrey • Leslie & Stephen Jerome • Deborah Johnson • Doris Johnson • Genevieve & John Kapelswski • Brian & Cindy Killough • Judith King • Dr. Lloyd E. King • Luke & Kathryn Kissam • Linda & David Kolifrath • Judith Koshiba • Raymond Kwong • Michaela Kyzekova • Dr. Kathy Laing • Donna & Cliff Lazarus • Dean Leffelman • Tracy Leopardi • Mary Longsine • Celeste Lutrario • Michael & Lise Maddux • Kris Ann & Lawrence Maestri • Elene Mahnken • Jason Malinowski • Blake Manola Family & Friends • Tricia & Jason Manola • Rick Marotta • Dr. Edward Mayland • Heather & James McCormack • Mary Lynn McDevitt • Marie & Terrell McElheny • Chad & Sharon McGee • Elizabeth & Gordon McNabb • Timothy & Adrienne McNeil • Erica Meilhede Family & Friends • Ava, Edward & Jordan Mendelson • Richard & Cheryl Metrick • Erin & Jeff Meyer • John & Kathie Miller • Stephen & Marsha Mock • Cindy Molnar Family & Friends • Dr. John & Carolyn Ann Moody • Darcy & Stephen Morrissette • Peggy Napier • Marvin Nevins • New Hampshire Support Group • Jennifer Nordstrom • Craig O’Sullivan • Marieclair Odell • Dan Odenheimer • Admiral Robert Papp • Adam Pariante • Thomas & Virginia Pollock • Kelly Pratt • Alice Price • Phillip & Bonnie Rabideau • George & Regina Raftis • John & Diane Rakocy • Sharon & Bruce Rarick • Kelly Rauen • Whitney & Carl Richmond • Tom, Caitlin & Laura Riley • Dr. Janet Roberts • Janis Roberts • Alice & Robert Ross • Judith & Robert Rubin • David Saltzberg • Kenneth Satir • Scott Schoenberg • R Gary Sexton • Christopher Skinner • Eileen Smyers • Donald Sosnowitz • Juliann Sousa • Nancy Stark & Stanley Iezman • Debbie & Eric Staubber • Denise Thornton • Carol Triest • Tucson, AZ Support Group • Susan Turner • Sheila Vega-Rogers • Margaret Veldman • Amy & Peter Viteznik • Joan Walborn • Amy & Ira Waldman • Richard Waldman • Eileen Walsh • Cory Wanatick • James Wentworth • Michelle & Ronald White • Dr. David Whiting • Dr. John B Whitley, Jr. • Lynn Wilson • Jan Wolf • Michael Wolfson • Ruth Ann Wood • Martha Worthy • Michael Zuravel Businesses Atlantis Cleaning Company, Newport Beach, CA • Bidwell Consulting Services, Inc., Chico CA • Cheryn International, Columbia, SC • Congoleum Corporation, Mercerville, NJ • DRD Medical PC, New York, NY • DermMatch, Inc., Sarasota, FL • Foundations Associates, Passaic, NJ • Freedom Wigs Ltd., Dunedin, New Zealand • Headcovers Unlimited Inc., Kemah, TX • The Headshop Wigs, Lindale, TX • Jordan Timberlands, Inc., Mount Gilead, NC • Laing & Dimick Dermatology, Ann Arbor, MI • Lori’s Wigsite, Coconut Creek, FL • Luso-American Life Insurance Society, Dublin, CA • Mavrides Moyal & Associates, Lake Success, NY • Mc 2 Enterprises, LLC, Baton Rouge, LA • Murray Hill Foot Care, New York, NY • Oasis Truck Tire Center, Fort Stockton, TX • Phillips Consulting, Inc., Louisville, KY • Salon Kokopelli, Brielle, NJ • Shaw Environmental, Inc., Monroeville, PA • Summers Laboratories, Collegeville, PA • The Valassis Giving Committee, Livonia, MI Foundations and Organizations Bartash Foundation, New York, NY • Community Health Charities of California, Sacramento, CA • Galpern-Mendelson Family Foundation • The Human Race, Santa Rosa, CA • Kirkland & Ellis Foundation. Chicago, IL • NAIC/NIPR Volunteer Resource Team, Kansas City, MO • Reuben Gittelman Hebrew Day School, New City, NY • Swinerton Foundation, San Francisco, CA • Westminster Elementary School, Westminster, MA GRAND PATRONS $250 TO $499 Donald & Mary Lynne Able • Tom & Jackie Ahrens • Rollie Alexander, III • Ashley & Michael Allen • Raul Amaya • Jon & Kathleen Andera • Dean & Carolyn Anderson • Glenn Auve • Kamoce Bamls • Xuemei Bao • Nan Barbas • Stephen & Rosemary Bedard • Michael Bernabeo • Dean Blake • Fran Blaustein • Suzanne Boe • Michael Bogardus • Diane Bonner • Maria Borgese • Sonya & John Bowman • Kendra & Paul Bramble • Kathleen Brennan • Theresa Bronson • Kim Bumpers • Dennis & Catherine Bye • Laurie & Robert Byren • Marie Caldaro • John Caldwell • Kimberly Campbell • Laurel & John Campbell • Danijela, Jin & Nikola Cao Family & Friends • Mary & Anthony Cefalu • Dr. Joseph & Sandra Cenac • Donald & Patricia Chambers • Suzanne & John Chartrand • Michael Chetock • Lisa & Gene Ciancio • Paula Cirtis-Carter • Nancy & Bob Clark • Susan & Roy Cleveland • Dr. Beth Colombe • Art Cooper • Mary Lou Colpoys-Wynne • Pat & Joseph Corvaia • Stacy & Brian Crain • Arlene & Donald Dahlgren • William B. Darwin, Jr. • Donald Deines • Celeste & Octavio Delgado • Ralph & Jean DeNunzio • Celeste Descoteaux • Cipa & Misha Dichter • Nenita Dudley • Mark Earley • Jackie Eris-Aczel • Ellen Enderle • Carol Eoneman • Adam Garcia Eveloff • Delores Evoe • Daniel Fahy • Dr. Steve Feldman • Edward Feldsoft • Barry & Odile Fidelman • Corie Flammia & Jim Murphy • John Floramo • Jerry & Janice Ford • Warren Forman • Michele & Tim Friedman • Patrick Gallagher • Stacy & Michael Gardner • Kathy & Lee Gause • Diana & David Gerland • Kelly Gerritis • Stephen Gervasi • Barbara & James Gilligan • Gary & Doreen Gittings • Kent & Julia Goodman • Linda & Leo Gordon • Craig Grassi • Jeff & Sherene Gravatte • Jane & Jim Graybill • Jody & Doug Greenstein • Yolanda Grisby • Robert & Pat Gruttadauria • Antonio & Dora Guastella • Yolanda Hailey • Edward & Patricia Hakim • Lisa Hakim • Mark Hakim • Harold Harms, Jr. • Sally & Stephen Harr • Carol & Timothy Hart • William Hartman • Kelly Heuer • Joanne & Sean Hogan • Paul & Jan Holtzman • Gerald Hulbert • Stephen & Leslie Isaacs • Steve Jacobson • Thomas Jeffers • Neil Johnson • Jeff Jones • Dr. Irving Katz • Bruce Kelleher • Mark & Molly Kelley • Catherine Kelly • Carla Kephart • Thomas & Margaret Kittle-Kemp • Chris Knight • Andrea & Ralph Knupp • Harold Koessner • Lisa & Daniel Kopina • Judith Kramer • Donald & Shirley Kuntzman • Jung Kwak • Milton Kyser • William Lanava • Jennifer Laurelli • John & Mary Ellen Lawlor • Harriet & Donald Levy • Caroline Lewis • Karen Linn • Justin Lockefeer • Steve Luparello & Laurie Drysdale • J. Maher • Briana Maierle Family & Friends • Christine & Alfred Maierle • Natalie Mamerow Family & Friends • Suzanne Mancuso • Cathy & Ross Manzo • Paul & Shawna Marino • Anne Mantsios • Carmen Martinez • Dawn Marvin • Mark & Priscilla Masselink • Carla Mathews • Kim Mathews • Carol Mayer • Holly McDonald Family & Friends • Richard McElwain • Robert McElwain • Christine & James McGarry • Arlene McGillis • Lorelei & Lawrence McGlynn • Karen & Darren McKinney • Timothy & Adrienne 7 McNeil • Robert Meyer • Dr. Laurence Miller • Charles & Roberta Mohr • Ahmad Moini • Pamela Molinaro • Brian & Cheryl Molohon • Anthony Montcalmo • Stephanie Morales • Lydia Morehead • Karen Nagle • Debbie & Cliff Neese • Bruce & Joan Nordstrom • Heidi Odmark • Paul & Laurie Olmstead • Dr. Elise Olsen • Seth Orlow • David Pacheco & Greg McAllister • Robert & Jean Paine • Christina Palendrano • Gary & Susan Petrovich • Elizabeth Phillips • Stephanie Pianka • Lara & Lance Pilkerton • Karen & Christopher Pohl • Edward Pollock • Paul Prairie • Anna Marie Purisima • Donna Radford • Adam Michael Randall • Emily Renz • Bruno & Isolde Reule • Ramona Reule • R James Rich • Brian & Jill Rifkin • Steve & Cyndi Roach • Dr. Douglas Robbins • Emma Robbins Family & Friends • Sandra Rodgers • Jackie & Olivia Rogers Family & Friends • Paula & John Rohrs • Norman Rosen • Andrea Rossel • Sandy & Olivia Rusk • Patricia & Thomas Savage • John & Dawn Savona • Walter & Mary Ann Schwenk • Millicent Scott • Regina Senour • Martin Setler • Shannon & Jeff Sheldon • Dr. Jerome Shupack • Dave Singer • Winifred & Victor Sirbu • Thomas & Lisa Sisbarro • Sharon Skweres • Lee Slattery • Theresa & James Smith • Wilbur & Grace Ann Smith • James & Jackie Snook • Victor & Trina Soder • Stephanie & Jane Solterman • Dr. Janice Spalding • Edward Spruck • Ann Marie & Ken Steele • Tyra & Danny Storm • Sheila & Lenn Stout • Glenda Stroh • Lenice & John Strohmeier • Jose Luis Pena Suarez • James Sullivan • Michael Sullivan • Tim Tabler • Jacqueline & Julian Taub • Anne Taylor • Robin & Claus te Wildt • Elisabeth & Timothy Tolley • Leo Tress • Linda Tygert-Lillard • Alok & Eliz Upadahyaya • John, Laura, Isabella & Quinn Viscovich • Bryan & Becky Wade • Lola Wagner • Margaret Warga • Leslie Watson & Roger Smith • Elizabeth Weaver & Patrick Diaz • Dr. Michael Welch • George White • Dr. Timothy Wiedmann • Edith & Kawain Wilarat • Christopher & Julie Wiley • Michelle & Fred Williams • Carlaine Willis • Margaret Woeppel • Asuncion & Calvin Wong • Daisy Yanez • Cathy & Ronnie Young • Vicki & Jason Zagrodzky • Carla & Mark Zashin • June Zhao Businesses 4Women, Sarasota, FL • Blinkies/Just Imagine It, LLC, Oregon City, OR • Bobcats Basketball, Charlotte, NC • Booz, Allen, Hamilton, Inc., Herndon, VA • Brookfield Police Dept., Brookfield, IL • CMC Building Supply, Cheraw, SC • CPS Railway Services, Inc., Berwyn, PA • Carl Morrow Insurance, Baton Rouge, LA • Commonwealth Bank & Trust, Louisville, KY • Compressor Elements, Monahans, TX • Confident Reflections, Norcross, GA • Conlon Exteriors, Massapequa, NY • Delaware Jaycees, Inc., Wilmington, DE • Glen Trexler & Sons Logging Inc., Wadesboro, NC • Guaranty Bond Bank, Fort Stockton, TX • It’s All About You Salon, Concord, NC • JAH Creations, Beauti-Full-Brows, Teaneck, NJ • L.A. Champagne & Co., LLP, Baton Rouge, LA • Lindbald Expeditions, New York, NY • McKernan Law Firm, Baton Rouge, LA • Metro Healthfairs, Glen Head, NY • Network Solutions & Training, East Northport, NY • Nisim International, Vaughn, Ontario, Canada • ‘N His Time, Hamburg, PA • Omni Prepaid, LLC., Pittsburgh, PA • P.G.T. Trucking, Inc., Monaca, PA • The Big Leagues of Baton Rouge, Rouge, LA • The Mail Bag Bocage, Inc., Baton Rouge, LA • The Moran Group of Baton Rouge, Inc., Baton Rouge, LA • The Philadelphia 76ers, Philadelphia, PA • Steak House Restaurant, Fort Stockton, TX • Superior Bar & Grill, Inc., Baton Rouge, LA • Way Cool Productions, Indianapolis, IN Foundations and Organizations Fish Family Foundation of Maine, Glenburn, ME • Anthony & Catherine Fusco Charitable Foundation, DE • Gloucester Township Education Association, Erial, NJ • Hallowell Elementary School, Horsham, PA • Holy Trinity School, Wallingford, CT • Milwaukee Spanish Immersion PTA, Milwaukee, WI • Northport Running Club, Northport, NY • Rogers Elementary School, Waterloo, IL • The Brookside School, Sea Girt, NJ • The Victor & Esther Rozen Foundation, Johnson City, NY 8 The National Alopecia Areata Foundation 2010 Annual Report PATRONS $100 TO $249 Daniel & Carol Achord • Ann Adams • Nancy & Carl Adams • Sheri & Jerry Adamson • Margo & Harold Adkins • Dr. Susan Albert • Liz Albrecht • John & Susan Allen • Carol & Tom Almond • Sally Alterman • Sally Alvis • James G Anderson • Kimberly & Kyle Anderson • Rachel & Mark Anderson • William Andreopoulos • Heidi & Dominick Andriola • Mary & Dave Annis • Wendy Ansdell • Amy Arabio • Kevin & Mary Arend • Dr. Georges Arjane • Henry & Linda Asher • Jack & Patsy Atkinson • Caroline Avery • Ana Azevedo • Valerie & Stan Babb • Nancy Babcock • Ray & Susana Baca • Joanne & John Baer • Ronald & Susan Bailitz • Anne Baker • Deidre Baker • Graham Baker • Pat & Bill Baker • Cheryl & Don Ballard • Kylie Bamberger • Sarah Banck • Roger & Peggy Baneman • Leah Barr • Elizabeth Barrera • Stephanie Bartow • Frank & Gloria Basile • Otto Bayer • Joan Beach • Barbara & Roby Bearden • Martha & Douglas Beattie • Cindy Beene • Gina Marie Bellavia • Jessie Bells • Merry & Bruce Bender • Stephen & Deborah Bender • Bonnie Berard • Beth Anne Berchtold • Phillip Berger • Cynthia & Richard Bernard • Vivian & Stanley Bernstein • Karen & John Berry • Tami & Kevin Best • Michael Bevilacqua • Michelle Bhagat • Blaise Bifulco • Michele & Ed Bigos • Lynn Birks • Sheelah Strong Black • Mary Ann Blanchard • Gina & Steven Bogan • Dena & Gary Bogardus • Cindy Bondio • Carol Booth • Carol Borie • Jamie Braden • Heidi & Michael Brasch • Kristine & Mark Brennan • Susie Briggs • Mike Brill • Ellen Briscoe • Dr. Paul Brooke • Philip Schoen Brooks • Terry Brown • Nancy Brownstein • Elizabeth Brunton • Tanya Buchanan • Albert Buenrostro • Jim & Barbara Bunning • James & Madeline Burgess • Ken & Mary Jo Burnes • Steven & Pauline Burton • Erica Bush • Stuart & Lowen Bush • Roger Bushnell • Deborah Busking • Roberta Buttino • Richard Buxton • Donna Caches • Louise & Fred Cafasso • Robert & Sharon Caldwell • Karen & John Callahan • Lynn Callaghan • Robert & Catherine Cameron • Angela Campbell • Nancy & Cal Campbell • Michael Camras • John & Donna Capell • Kerry Capell • Doris Caporrino & Ted Cornell • Vanessa & Gary Cardwell • Barbara Carmichael • Jacqui Carnog • Robert Caron • Janice Carpenter • Virginia & Frank Carpenter • William & Paula Carroll • Jennifer Carsner • Sarah Cash • Larry Castro • Mary & Joseph Catanzaro • Dulce Ceron • Helen Cerulli • John Chafey • James Chagnon • Dr. Janice & Gerald Chandler • Satish Chandra • Barbara Chesarek • Beth Cheverie • Kathleen & Gary Childers • Maria & John Chomeau • Mindy Chrystal • Mary E Cid • Francesco Cifelli • Felicia Cilibrasi • Philip & Jeanette Cinelli • Michael & Carol Clarke • Judy Cleveland • Brian Closs • Loreen & James Cody • David & Judy Cohen • William & Patricia Cole • Kevin Coleman • Judy & Stephen Collier • Mary & Richard Collier • Tammy Collins • Jim Coleman • Wendy Concepcion • Tom & Laura Conklin • Denise & CJ Connelly • Eleanor & Timothy Connors • Christian Conroy • Eloisa Magpayo Contaoi • Stephen & Gayle Corbin • Richard Cordes • Gino Corona • Zachary Correa • Sunny & Marisol Cortes • Joe Corvaia • Alice & Anthony Coscia • Martha & Sam Cosco • Richard & Dianne Cota • William Coulter • John Cowperthwaite • Carol Crabb • Olivia Crayne • Irene & Philip Crosby • Lynne & Bill Crowder • Janet Cuffman • Pam & Anthony Culotta, Jr. • Liliana Cunha • Arthur & Roya Curtis • Gene & Grace Curtis • Mary Lou & Ronald Czupek • Nicole D’Amico • Carl & Marie D’Angelo • Kathleen & Daniel Dahlkemper • John & Rebecca Dailey • Jonathan Daniell • Patrick Danley • Mary, Dale & Ted Davidson • Marla & William Davis • Janis Davisson • Jessa & Douglas Dawson • Jill Dayan • Rosella De Anda • Marie De Lia • Leta DeFee • David & Nancy DeLuca • Christianne & Sam DeNardo • Jennifer DeVivo • Andree Dean • Christopher Dean • Keith & Lauri Decell • Hochi Delossantos • Michael & Jacqueline Dewey • Nancy & Chris DiBella • Mary DiNardo • Cora Diamond • Linda Diller • Thomas & Melinc Disare • Mark Dobbins • Eileen Dodd • John Dodson • Melissa Dogonniuck • Eileen F Dolan • Terry & Orlando Dominguez • Kathleen & Albert Doty • Barbara & Edward Dowski, Jr • Ronald & Dianne Drewing • Joan & Richard DuBose • Kristy DuFresne • Viola Duarte • Andrea, Rancy, & Alana Dube • Donna Dufort • Robert Dumeyer • Michael Dumont • Keith Dunlap • Geraldine Dunn • Priscilla Durkin • Kevin Durning • Scott & Debbie Eagle • Joe Ealy • Gwendolyn East • Carol Ebron • Barbara & Walter Echo • Mr. & Mrs. John Ecker • Dorothy Edelman • Susan Edmonson • Ann & Edward Egan • Mary Lou Einhorn • Pat & Steve Ellenwood • Myrna Elliott • Ruth Ellison • George & Lois Elty • Michele & Michael Emanuele • Candy & Terry Engelland • Tracy Ennels • Barbara & Michael Enos • Jackie Erickson • Dr. James Ertle • Mr. & Mrs. Billy Espino • Roxana & Gabriel Espino • Kelly & Mark Eudy • Kristine Eule • Joanne & Gregg Evangelist • William W Evenson • Pamela & Douglas Evertz • Margaret & Ignatius Fadanelli • Debra Farve • Elvera Fasano • Dwight & Anne Fawcett • Dwight, Christina, Jackson & Pete Fawcett • Jill Komorowski Fayan • LeRoy & Alma Fennimore • Neil G Ferrari • Timothy S Fetzer • Daniele Figliuolo • Andrew & Debra Filla • Gunilla & Jerry Finrow • Juan Flaim • David & Lezlee Flanders • Brian Fleischer • Harris, Andra, & Livy Footer • Darlene Foster • Tracy Foster • Christine Foti • Thomas Fowler • Glen Fowlie • David Fox • Susan & Carl Fox • Tammy Frady • Ronald & Joyce Franey • John A Frank, III • Jennifer Frankenberger • Barbara Franklin • Carol & John Fravel • Avis Frazier • Judy & Allen Freedman • Dudley & Helen Fricke • Bill & Rosanne Frickenstein • Carol & Donna Fritts • Beverly Frontero • Dr. Jan Fuerst • Regina Fuks • Debbi Fuller • Ken & Lois Furr • Antoinette & Anthony Fusco • Lois Gafford • Carol Gallagher • Bonnie Gallant • Vanessa Gallant • Thomas & Theresa Gambacorta • Janet & Dominic Gambacorto • Kathy Gappa • Omar Garcia • Kenneth & Cynthia Garni • Sally & Don Gattuso • Joan Gawdun • Dean Gekas • Susan Gelsomino • Richard Gelula • Frances Gentile • Ann Marie Germani • Martin & Jenny Gerst • Joshua Gertzog • Maria & Jay Ghazal • Robert Gibson • Brian & Cindy Gil • Lisa & Taylor Gilbert • Lilya & Yefirm Gilgur • Carla Gizzi • Rae Glassman • Mishon Glisson • Carolyn Goh • Dr. Lynne Goldberg • Donald & Terry Goldblum • Susan Goldhaber • Dr. Peter Goldman • Julie Gonsiewski • Delma & Jamie Gonzalez • Rebecca Gonzalez • Arthur & Ina Gordon • Sean Gordon • Diane & Charles Gormley • Mary & William Gormley • Svetlana Gourevitch • Helena Goworek • David Graesser • Margaret Graham • Leroy Gravatte, III • Paul McRae Green • Kim & Brian Greenwell • Mike & Amy Griebel • Chris Griffin • Gary & Mary Griffin • Barbara & Robert Griffith • Oscar John Groebl • Mason Gross • Joseph & Irene Groskiewicz • Susan Grove • Ruth Guenzburger • Carolyn Guerra • Catherine Gulati • Kelly Gustafson • Juan Gutierrez • Ralph & Sharon Gutierrez • Jean Gutman • Judith Gutow • Maureen Haeffner • Marsden Haigh • John P. Hakim • Jason Hall • Tania & Tom Hall • Thomas Halloran • Thomas & Holly Hallum • Jane & Ed Haltness • Stephanie & Raymond Hamilton • Walter & Diane Hamilton • Michael Hammond • Dr. Raymond & Arlene Handler • Kathleen Hanratty • Nancy & Edward Hardin • Carlton & Milton Harper • Edgar Harrington • Jolene Harris • Kristi & Todd Harris • Tim Harris • Dr. Takashi Hashimoto • Housria Hassouna • Daniel & Mari-Kay Haubert • Christa Haugh • Cory W Hawkins • Dana Hawkins • Geoffrey & Marin-Shawn Haynes • James Haynes • Joan Healy • Lisa & Jim Heavner • James & Lisa Heberling • Michelle & R Scott Heinl • Dennis & Marcia Heitzmann • Amy Heller • Stacie Helm • Jerri & George Helmreich • Bill Hendricks • Glen & Kathleen Hendricks • William & Catherine Hendricks • Charles Henness • Susan Henness • Dr. Ann E Hern • Nancy & Tony Hernandez • Brett Herrington • Gareth Heyman • Nancy Hibbs • Paula & Kathryn Higbee • Lisa Hight • Delmon Hodges • John & Edith Hogan • Beverly Holden • Sheri Holder • Robbi Hollister • Elizabeth Holowinski • Linda Horn • Dr. Diane Hoss • Betty Hudson • Sharla Hughes • Kathy Humbracht • Haydi & Bill Hurley • Martha Hurtado • HenryHutchinson • Thomas Hynes • Lee & Mary Ibsen • Dr. Chull-Wan Ihm • Mike & LeeAnn Ikemoto • Carol A Imle • Caryl Ingram • Kunio Ishida • Nanci & Bob Jacobson • Lenora Jannazzo • Marie Jastrow • Lynn Jennings • Donna Jerz • Jaclyn Jerz • Emma Johns • David Johnson • Gloria Johnson • Linda Johnson • Martha Johnson • Patricia & Edward Johnson • Jill Johnston • Susan Johnston • Richard Jonas • Matthew Jones • Sheila Jones • Jeff Jordan • Debbie Jorgensen • Larry & Susan Kaasa • Dawn Kagan • Debra & David Kahn • Matthew Kahny • Allen & Susan Kallor • Heather & Brian Kannheiser • Howard & Debi Kaplan • Joan Kapstein • Wendy & Steven Kapusta • Albert & Camille Kariya • Virginia & Myron Karki • Alyson Karrington • Dina & John Keane • Mary Kelleher • Richard & Charlotte Kelley • Anya Kendell • Robert J & Kay B Kenney • Bruce & Joyce Kent • Mudasir Khan • Eindar Khant • Terry, Patricia & Keri Kight • Sandy Kim • Robert King • Hanna Kino • Cynthia & Peter Kinsella • Joan L Kistler • Steven Klein • Tom Klimala • Christopher Kline • Sunny & Dave Kline • Stephen & Lisa Kloch • Dr. Rebecca Knapp • Patricia Kodym • Harold Koessner • Rosemary & Steven Koffman • Anne Kolvo • Elissa & Marvin Kon • Joe & Takako Koplin • David Kordt • Ellen Kosmatka • Margaret Kostecki • Arline & Robert Kramer • Marian Kramer • Roger Kraynick • Edward Kreise • Douglas Kress • Poplin Koese • Mark Krueger • Susan Kuper Smith • Arlene Kurtis • Sandra Kyer • Dr. John Kyriazis • Luz & Anthony Labato • Belinda & Nathan Lader • Louis Lagana • Mary & Mark Lahey • Sylvia Laird • Ann Marie & Robert Lake • Sharon Lakin • Leona Lamanna • Nancy Lamberti • Kim Lang Renzi • Phil & Kimberly Lanning • Renata & Joseph Lantos • Barbara Larson • Ronald & Jesslyn Larson • Kathleen Latimer • Edward & Ursula Lauer • Alexandra Laurelli • Ursula Lavelle • Frances & Robert Lawrence • Brian Lawson • Dr. Joseph Laenza • Melissa & James Leder • Maria Ledger • Marcia Leinwand • J Gordon Lent • Donna Leotta • Jacqueline Lessard • Paula Leszyk-Haney • Pearl Levine • Jerome & Catherine Levinson • Howard Levitas • Harriet & Donald Levy • Claudia P Lewis • Lawrence Lewis • Dr. Lawrence M Lieblich • Alex Limanni • Candice Linder • Matthew Lindquist • Andrea Lindstrom • Sarah Beth Linn • Barbara Lino • Andrea Lipack • John & Mary Lippincott • Ryan & Lisa Lippincott • Alfred & Jere Litchenburg • Jan Litvene • Gloria Liu • Carolyn Lloyd • Lisa Lloyd-Washington • Lawrence & Doreen Logan • Glenna Loggie • Susan Lohsen • Joseph Longo • Nancy & Michael Lotto • Jennifer Lowe • Deborah Lucas • Roberta Lukowitz • Edwardo Luna • Deena Luria • Brittney Lynch • Catherine & Thomas Lynch • Claire & John Lyons • Egbert Maben • Richard MacDonald • Cheryl MacEwen • Donna MacFarlane-Franz • Robert & Michele Machion • Ken Macura • Karen & Stephen Madden • Christine, Vincent & Stephen Maefsky • Bernice Mahler • Andrew Mancini • Nancy & Phil Maniscalco • Christina, Jeffrey, Logan & Gavin Manuola • Mark Manzo • Louise Marchesi • Annette Marden • Robert & Elizabeth Maresca • Sandra Marine • Frank & Marie Marino • Dr. Leslie Alison Mark • Ernest & Marion Marola • Kelly & Scott Marshall • Jane Marsteller • Rhonda Martell • Suzette & Lawrence Martin • Cynthia & Douglas Mashburn • Ben & Vivian Mason • Marc & Rachel Mastriano • Mark Masur • Russell Mathers • Peter Mattaliano • Paula & Neil Maxwell • Keith & Susan Mayeaux • Mark Mazurek • Maggie McBennett • Dale McCarter • Linda McCoog • Jan & William McCormack • John McCurry • Patricia A McDivitt • Lynn McDonald • Donna McElwain • A L & Judi McFatter • Linda McGarry • John & Hope McGettigan • Mary McGettigan • Roy & Doreen McGillis • Bridget McGowen • Denise & Michael McKeigan • Mrs. Roy McKenzie • Anne & David McLaughlin • James McLaughlin • Steve & Christa McLellan • Chris McPartlin • Patrick McQuade • Elizabeth McTiernan • Margie & Marc Meadow • Leona Meadows • Ann & Tom Meek • Luz Mercado • Nicole Messina • David & Rebecca Mexicotte • Christie & John Miller • John & Celene Miller • Lisa Miller • Mary & Robert Miller • Susan R Miller • Barbara Mintz • Roya & Iraj Mirshahi • Helena Miskel • Jeffrey Mitchell • Leigh Anne Mitchell • Samair & Sundari Mitra • Peter & Wendy Moen • Shirley & Edward Moffett • Ranvir & Prita Mohindra • James & Fran Mollis • Carl & Patricia Monnin • Mary Ann & Monte Monson • Michael & Rhonda Montgomery • Dorothy Moore • Douglas Mopi • Robert Morgan • Julie Morreale • Karen & Dean Morrell • Lorraine Moscardini • John Motter • Dianne Moulton • Kelly Mroz • Kimberly Mueller • Dr. Sigfrid Muller • Michael Mulligan • Tom Murray • Debbie Muscatel • Michele Myers • Chris & Janice Nagy • Alana & Glenn Nahmias • Patricia Nasuti • Dr. Javier Navarro • Andrew Neary • Roger Nelson • Ann & Duane Neshek • Edwin & Alice Neuman • Susan Nevel • William O’Brien • Chris S O’Connor • Daniel O’Connor • Carol & Tim O’Keeffe • Megan O’Shaughnessy • Madelaine & John O’Shea • John Odmark • Linda & Peter Oeth • Celia & Ron Offir • Christina Oh • Dr. Cornelius Olcott • Bradley Older • John Onderdonk • Kathy & Mike Oney • Dr. David Orentreich • Dawn & Stephen Orr, Jr. • LaRaye Osborne • Rita & Stephen Osit • Azur Osmanbasic • Joy Ott • Larry Overley • Linda Owen • Grace Owens • Bonnie Pactor • Peg & Jeff Padnos • Gerald & Sharron Page • Joan Palmisano • Maryangela Pantages • Tulla Paplow • Dr. John Park • Daniel & Elaine Pasciullo • Ermina & Louis Passarella • Kari & Steve Passarella • Janet & Dirk Pasterkamp • John Patton • Sue Paulus • JoEllen Pavia • Nancy & William Payton • Aimee Pazaski • Noah & Hillary Peaches • Barbara Pejokovich • Michelle Pejokovich • Dr. Argentino Pellegrino • Emily Pelrine • Jane & Mark Perkins • Roxann Petersen • Mary Petillo • Denise Petit • Lori & James Petraglia • Adrienne Petras • Sheila & William Petrucci • Everett Pettiecord • Ruth & Alan Pfeffer • Leon & Julie Pipho • R Michael Pitt • Nicholas A Plakopitas • Linda & Andrew Platt • Gene Pletzer • Jodi Pliszka • Sharon & Larry Plonsker • Virginia & David Polley • Carol & Jules Pomerantz • Joseph Popovich • Deborah Porter • Sherry Poss • Dr. Kathleen & Ms. Alison Potter • Keith Powers • Mary Beth Powers • John Preston • Susan & Dave Price • Jennifer Prince • Tom & Marilyn Pugliese • Melissa Pusateri • Cindy & Robin Quello • Jerome Quinn • Joy Radulovic • Joanne Ramos • Marsha & Kenneth Ramsey • Jeanne Rappoport • Pamela Raque • Warren Rasmussen • Mark & Giselle Ratain • Wilma & William Rattray • Ilga & Edward Rauchut • Sharon Ray • Carl Recknagel • Marjorie Reed • Dr. Mel Reich • Judith & Gene Remaklus • Jane Remis • Diana Renna • Danielle & Nitzan Reouveni • Armeto Reynolds • Jessica Ribeiro • Barbara & Carl Rice • Joann & Keith Richardson • Dr. Jennifer Ridge • Eleanor Rieger • Stephen & Janet Roark • Charles Robin • Alison Robinson • Janet Robinson • Lidia & John Rocha 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Rotary foundation, Blackwood, NJ • Maryland Charity Campaign, Baltimore, MD • Monroe College Sunshine Fund, Bronx, NY • Northwood Elementary School, Franklin, IN • Riverside Lodge, No. 39, Riverside, IL • Thomas Edison Magnet School, Meriden, CT • Wedgewood Park International School, Milwaukee, WI INVESTIGATE The National Alopecia Areata Foundation 2010 Annual Report HOPE 9 DISCOVER NATIONAL ALOPECIA AREATA FOUNDATION 2010 BOARD OF DIRECTORS Robert Flint Retired Engineer Houston, Texas Harris Barer, Chair Partner, Law Firm New York, New York Gary Gordon, MD, PhD Pharmaceutical Research Highland Park, Illinois Vera H. Price, MD Hair Research Center University of California, San Francisco San Francisco, California Brian Ter Haar, Chief Financial Officer, Chair Elect Business Owner Baton Rouge, Louisiana Donna Hakim Marketing Consultant Wall, New Jersey NATIONAL ALOPECIA AREATA FOUNDATION 2010 CORPORATE STAFF Jay Bokulic, Secretary Program Manager Ashburn, Virginia Hoy Lanning, Jr Business Owner North Carolina Richard Dest, DDS Dentist Charlotte, North Carolina Maureen McGettigan Senior Account Executive, Drug Development Company Flourtown, Pennsylvania Bruce Fiscus Businessman San Francisco, California Alan Pallie Business Owner San Rafael, California FOUNDING CHAIR Laura Ralph Resource and Information Specialist Angela Christiano, PhD Columbia University New York, New York Mary Cosgrove Website and Database Specialist Madeleine Duvic, MD MD Anderson Cancer Center Houston, Texas James H. Stoppello, CPA, JD Legal and Financial Advisor Marc Glashofer, MD Island Dermatology Long Beach, New York Vicki Kalabokes President and Chief Executive Officer NATIONAL ALOPECIA AREATA FOUNDATION 2010 SCIENTIFIC ADVISORY COUNCIL Jeanné Rappoport Vice President Administration and Meetings Maria Hordinsky, MD, Chair University of Minnesota Minneapolis, Minnesota Lisa Butler Vice President Communications David Norris, MD, Past Chair University of Colorado Health Sciences Center Denver, Colorado Jerry Shapiro, MD, FRCP, ViceChair University of British Columbia Vancouver, BC, Canada Vicki Kalabokes, Executive Secretary President and Chief Executive Officer, NAAF Gary Gordon, MD, PhD NAAF Board of Directors Chicago, Illinois Lloyd E. King, MD, PhD Vanderbilt University Nashville, Tennessee Amy McMichael, MD Wake Forest University Winston-Salem, North Carolina Alan Moshell, MD George Washington University Washington DC Sigfrid A. Muller, MD Las Vegas Skin and Cancer Clinic Las Vegas, Nevada Members of the NAAF Volunteer Board of Directors at the January Planning Meeting. Front, left to right: Jay Bokulic, Harris Barer, Brian Ter Haar. Rear, left to right: Alan Pallie, Maureen McGettigan, Richard Dest, Donna Hakim, Gary Gordon, Hoy Lanning Jr., and Bob Flint (missing is Bruce Fiscus). Elise A. Olsen, MD Duke University Medical Center Durham, North Carolina Anthony Oro, MD Stanford University Medical Center Palo Alto, California Len Sperling, MD Uniformed Services University Bethesda, Maryland Richard Strick, MD UCLA School of Medicine Los Angeles, California John Sundberg, DVM, PhD The Jackson Laboratory Bar Harbor, Maine David A. Whiting, MD Baylor Hair Research & Treatment Center University of Texas Southwestern Medical Center Dallas, Texas MISSION The National Alopecia Areata Foundation (NAAF) supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata. 14 Mitchell Boulevard San Rafael, CA 94903 Phone: 415-472-3780 Fax: 415-472-5343 Email: [email protected] Website: www.naaf.org NAAF is a private, tax-exempt, nonprofit organization pursuant to Section 501(c)(3) of the Internal Revenue Code, and all gifts and donations to NAAF are tax deductible. Tax ID number is 94-2780249. Printed on recycled paper using vegetable-based inks. © 2011 National Alopecia Areata Foundation