- Leukaemia Foundation

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J u n e 2 011
HAVING CML DOESN’T HOLD PAMELA
BACK FROM LIVING A FULL LIFE
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PHASE II TRIAL FOR PIVOTAL NEW
DRUG – PONATINIB
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* An ‘orphan drug’ is a drug that has been developed to treat a rare disease.
This status is granted by health authorities to stimulate research, development
and approval of these drugs
HAVING CML DOESN’T HOLD PAMELA BACK
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TAILORED TREATMENT – AIM OF
GROUND-BREAKING RESEARCH
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Associate Professor Deborah White
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HELP US HELP YOU: BE PART OF CML SURVEY
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CML TOP TIPS
“If nausea is your issue, try taking your Glivec just prior to
sleep. This will allow you to slumber through the worst of
the nausea.”
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OUR CML SPECIALISTS & RESEARCHER
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I]Zc^ci]VccjVaNew Horizons in Treating Cancer
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National CML ambassador, Sue Hurt
HAVE YOU CONSIDERED ALL YOUR ENTITLEMENTS?
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Peer Support Programs![gdb>cY^V!VcYPutting Cancer on
the Health Policy Agenda!^c@ZcnV!idi]Z8BAA^i]jVc^Vc
<gdje»hegZhZciVi^dc!Move Health Authorities to Action:
Improving Access to Glivec and Tasigna in Lithuania.
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The Leukaemia Foundation thanks Sue Hurt for providing
us with her personal views from the conference, which
have been presented in this article. Sue's attendance at the
conference was sponsored by Novartis Oncology.
CML TOP TIPS
s Don’t use having CML as an excuse not to live your life to
the full.
s Exercise may help you with your ‘new’ body issues,
depression issues and fatigue levels. For your motivation,
take the dog for a walk – this will help you.
s On days when you don’t feel like cooking, use a slow
cooker. It’s so easy to just throw in meat and vegies, and
at times when you may not even feel like dicing up foods,
simply add them whole. They will break down, so you can
eat it all easily, and this is very nutritious for you too!
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Continued on page 7
ANGELA’S THE LONGEST SURVIVING
BMT RECIPIENT IN WA
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YOGA IMPROVES SLEEP AND
REDUCES FATIGUE
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6hgZedgiZY^ci]Z_djgcVaMedscape Oncology,
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HAVE YOU CONSIDERED ALL YOUR ENTITLEMENTS?
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h^ijVi^dcldjaY]VkZWZZca^iiaZaZhhi]VcY^gZl^i]djii]Zb#
Mike Eisenblatter and his wife, Barbie
EDUCATION AND SUPPORT PROGRAMS
FJ::CHA6C9
K>8IDG>6I6HB6C>6
21 Jun
23 Jun
10.30am12noon
Shepparton Blood Cancer Information & Support Forum
(also 23 Aug)
11am-1pm
Launceston Blood Cancer Information & Support Forum
(also 19 Jul; 16 Aug)
10am-12noon
Horsham Blood Cancer Information & Support Forum
(also 25 Aug)
16 Jun
10am-12 noon Caring for the Carer Program: Strategies for Coping
16 Jul
9am-3pm
Taking Control program workshop
9 Aug
11am
Getting Your Life In Order Following Diagnosis, South
Brisbane
18 Aug
10am-12noon
Caring for the Carer Program: Role of the Carer
25 Aug
10am-12noon
Caring for the Carer Program: Carer Burnout
11am
Relaxation: Easier Said Than Done, South Brisbane
2-4pm
CML Blood Cancer Information & Support Forum, Preston
(also 25 Aug)
31 Aug
29 Jun
11am-1pm
Hobart Leukaemia/Stem Cell Information & Support
Forum
C:LHDJI=L6A:H68I
5 Jul
11am-1pm
Hobart Taking Control Program, Diet & Exercise (also 20
Jul, Role of the Social Worker; 2 Aug, Emotional Support;
17 Aug, Role of Natural Therapies)
14 Jun
10.30am12noon
Tuesday Chat, Coffs Harbour
16 Jun
13 Jul
1.30-3pm
South Gippsland Blood Cancer Information & Support
Forum
10am –
12noon
Canberra Haematology Information & Support Group,
Narrabundah
21 Jun
6-8pm
Taking Care of Finances, Woden Seniors Club, Woden
19 Jul
1.30-3pm
Central Gippsland Blood Cancer Information & Support
Forum (also 16 Aug)
30 Jun
10-11.30am
Coffee Morning, Erina
21 Jul
1.30-3pm
West Gippsland Blood Cancer Information & Support
Forum (also 18 Aug)
CDGI=:GCI:GG>IDGN
28 Jul
10-11.30am
Barwon Blood Cancer Information & Support Forum
(also 25 Aug)
9 Jul
10am-12noon
Ballarat Blood Cancer Information & Support Forum
South East Melbourne Blood Cancer Information &
Support Forum
8BAC6I>DC6AI:A:E=DC:;DGJBH
4 Aug
10-11.30am
Bone Marrow Transplant Information & Support Forum,
Preston
11 Aug
10-11.30am
Mornington Blood Cancer Information & Support Forum
21 Jul; 18 Aug;
15 Sep; 20 Oct
Patient Education Day, Darwin
7:30pm
Contact your local support services
co-ordinator on 1800 620 420 or
[email protected]
20 Jun
1.30-3pm
Patient Support Group, North Perth (also 18 Jul; 25 Aug)
IdgZ\^hiZg[dgVaaZYjXVi^dcVcYhjeedgiegd\gVbh!
XdciVXi/
24 Jun
10.3011.30am
Bunbury Patient & Cancer Support Group (also 29 Jul;
26 Aug)
A:J@6:B>6;DJC96I>DCHJEEDGIH:GK>8:H
E=/&-%%+'%)'%;G::86AA
30 Jun
1am-2pm
CML information session, Subiaco
;dgbdgZ^c[dgbVi^dc/k^h^illl#aZj`VZb^V#dg\#Vj
HZgk^XZh3:YjXVi^dchjeedgiegd\gVbhhZXi^dc
L:HI:GC6JHIG6A>6
12.30-2.30pm Free yoga session, Wangara (also 28 Jul; 25 Aug)
VACCINATE TO WARD OFF LATEST FLU STRAINS
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l^i]8BAidjhZ#
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[V^ajgZ#
>c8BAeVi^Zcihl]d]VkZlZaaXdcigdaaZYY^hZVhZdcadc\"
iZgbingdh^cZ`^cVhZ^c]^W^idgi]ZgVen"^bVi^c^W<a^kZX œ!
c^adi^c^WIVh^\cVœdgYVhVi^c^WHegnXZa œ"i]ZegdiZXi^dc
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i]Z\ZcZgVaedejaVi^dc#
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bVcj[VXijg^c\egdXZhhVcYeZdeaZl^i]heZX^[^XVaaZg\^Zh
VgZVYk^hZYidXdchjaii]Z^gYdXidgeg^dgidVXXZei^c\i]Z
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/52 6)3)/. 4/ #52% !.$ -)33)/. 4/ #!2%
The Leukaemia Foundation is the only national not-for-profit organisation
dedicated to the care and cure of people affected by leukaemias,
lymphomas, myeloma and related blood disorders.
The Foundation provides emotional support, accommodation,
transportation and practical assistance for these people. It also funds
research into cures and better treatments for leukaemias, lymphomas,
myeloma and related blood disorders.
The Foundation receives no direct ongoing government
funding and relies on the continuous support of
individuals and corporate partners to provide its services
and to fund its research programs.
To find out more about the work of the Leukaemia
Foundation and how we can help, phone 1800 620 420
or visit www.leukaemia.org.au.
This newsletter has been produced through an unrestricted educational grant from Novartis and BMS.
$ISCLAIMER .O PERSON SHOULD RELY ON THE CONTENTS OF THIS PUBLICATION WITHOUT FIRST OBTAINING ADVICE FROM THEIR TREATING SPECIALIST