conference program - Health Datapalooza
Transcription
conference program - Health Datapalooza
CONFERENCE PROGRAM The Health Data Consortium is a collaboration among government, non-profit, and private sector organizations working to foster the availability and use of health data to drive innovations that improve health and health care. Our mission is to ignite innovation and foster collaboration amongst health data users and stakeholders for the benefit of everyone. We will promote responsible health data use and hasten the movement through advocacy, education, and targeted “catalyst” programs. We have developed three foundational strategies that we believe will transform the use of health data and accelerate the benefits dramatically: Open health data: Focusing initially on government, HDC will advocate for release of de-identified data at all levels in order to improve health outcomes, inform choices, increase transparency, and drive accountability across the system. We will promote the operational “readiness” of the data—it must be documented, supported, and continually improved to ensure its safe and broad use. Enable and promote data sharing across the health system: HDC will promote responsible health data sharing policies, standards, practices, collaborations, and reforms that improve health outcomes, catalyze innovation and facilitate research, and drive efficiencies. This effort will require a balance between the missions of the public and private sectors—a balance we believe is achievable through cooperation and partnering among the many stakeholder groups. Promote a human-centered health system, powered by health data: It’s about better health and a more personal healthcare experience. HDC will promote a vision for health data exchange that elevates the role of each of us, empowers patients with information and control of their data, advocates for secure information-sharing policies, and seeks to create a robust patient information framework to improve patient outcomes and the healthcare system. Come join the health data movement. For more information about Health Data Consortium, visit www.healthdataconsortium.org 2 I Health Datapalooza 2015 or follow @hdconsortium on Twitter. TABLE OF CONTENTS Message from Health Data Consortium CEO................3 Steering Committee/Acknowledgements.....................4 General Information..........................................................5-6 Special Recognition and Challenges................................7 Health Datapalooza 2015 Sponsors.................................8 Health Datapalooza 2015 Media Partners......................9 Schedule-At-A-Glance................................................. 10-14 App Demos..................................................................... 16-17 Special Events................................................................. 18-19 Detailed Agenda............................................................ 20-32 Post-Conference Workshops............................................ 33 Main Stage Panels......................................................... 34-35 Keynote Speakers................................................................ 36 Main Stage Emcees and Moderators............................ 37 Exhibitor Listing................................................................... 38 Exhibitor Map....................................................................... 39 Health Datapalooza 2015 Exhibitors....................... 40-45 Hotel Floor Plan............................................................. 46-47 More info can be found on the app WELCOME TO HEALTH DATAPALOOZA 2015! On behalf of Health Data Consortium, the event’s partners and sponsors, and the 2015 Steering Committee, I welcome you to the sixth annual Health Datapalooza. I could not be more excited to welcome you to Health Datapalooza 2015, the only conference which fuels discussion around the future of health data and its innovative use to invoke provocative change in the industry. Spend the next three days networking and hearing from consumers, providers, payors, researchers, innovators, policy makers, and many more health data thought leaders – all of whom have come together to focus on the cultural, technological, and political issues and trends related to health data. Expand your experience and take the conversation online using #hdpalooza. Keep up with the conversation online using #hdpalooza. Each day features keynote presentations from impactful visionaries across the field. Your educational experience is rounded out with breakout sessions that will explore key questions and concepts in health data in relation to clinical care, data science and infrastructure, impact, innovation, patients and consumers, and more. We are in the midst of a healthcare data revolution, and each of us has an important role to play. It is only through crosssector collaboration and forward-thinking dialogue that we will continue to drive the conversation toward a future where technology aids in the advancement of patient care and the healthcare industry as a whole. During your time at Health Datapalooza, don’t just join the conversation… BE the conversation. Join our year-round mission to ignite innovation using health data! Learn more at HealthDataConsortium.org. Your fellow data hippie, Christopher Boone, PhD, FACHE Chief Executive Officer, Health Data Consortium Taking the conversation from abstract theory to innovative practice, 40 organizations will showcase their latest apps in our Apps Expo, with App Demos featured on the main stage. And explore the exhibit hall where you will find some of the very best real-life examples and applications of health data. New Challenges will be announced at Health Datapalooza. Be the first to hear details regarding these opportunities to transform health care and win big prizes. Join the conversation at #hdpalooza I 3 STEERING COMMITTEE / ACKNOWLEDGMENTS Health Datapalooza 2015 Steering Committee David Knott, Chair, Steering Committee, Senior Partner, McKinsey & Company Christopher Boone, Chief Executive Officer, Health Data Consortium Gregory Downing, Executive Director for Innovation, U.S. Department of Health & Human Services Karen Ignagni, President and CEO, America’s Health Insurance Plans Mohit Kaushal, Partner, Aberdare Ventures Bob Kocher, Partner, Venrock Kavita Patel, Fellow and Managing Director, Engelberg Center for Health Care Reform, Brookings Institution Casey Quinlan, the Mighty Mouth, Mighty Casey Media LLC & Patients for Clinical Research Dwayne Spradlin, CEO, Buzz Points 4 I Health Datapalooza 2015 The Health Data Consortium is fortunate to have supporters and friends who are equally committed to the success of Health Datapalooza. We would like to acknowledge those efforts to make this year’s conference a truly remarkable event. First, we must acknowledge and thank all of our sponsors, including our Platinum Sponsors, Esri, PricewaterhouseCoopers, and Surescripts as well as our Founding Sponsors, Robert Wood Johnson Foundation, California HealthCare Foundation, the U.S. Department of Health & Human Services, and the Institute of Medicine of the National Academies. The Health Datapalooza Steering Committee played an instrumental role in the development of the event’s program and in securing outstanding speakers. Many thanks to the chair of this year’s event, David Knott, and all of the Steering Committee members for their time and support. Numerous outstanding partners helped organize this year’s event. A partial list includes Courtesy Associates, Feinstein Kean Healthcare, and SmithBucklin. Volunteers are critical to the success of Health Datapalooza. Session cotrack leaders, moderators, panelists, reviewers, and judges made possible a variety of Health Datapalooza activities – we could not have done this without you! Finally, we would like to give a special thanks to the U.S. Department of Health & Human Services for their leadership and support in the area of health data and for their contributions of time and energy in helping make Health Datapalooza the success it has become. More info can be found on the app GENERAL INFORMATION Registration Hours Location: Lobby Level of Marriott Wardman Park • Sunday, May 31 4:00 pm – 7:00 pm • Monday, June 1 7:00 am – 7:00 pm • Tuesday, June 2 7:00 am – 7:00 pm • Wednesday, June 3 7:00 am – 12:00 pm Exhibit Hours • Monday, June 1 12:00 pm – 7:00 pm • Tuesday, June 2 11:00 am – 5:45 pm Accessibility for Registrants with Disabilities The meeting staff will work with attendees to provide reasonable accommodations for those who require special needs. To request assistance, please check in at the Registration Desk. Cameras, Recording Devices, and Cell Phones Please refrain from using cameras, recorders and/ or cell phones during the sessions in a manner that might disturb others. Cell phone ringers should be set to vibrate or turned off during sessions as a courtesy to speakers and other attendees. Personal photography is permitted at social functions. Conference attendees are encouraged to tweet about the conference using #hdpalooza Badges Badges should be worn to all official functions. If you forget or lose your badge, you may obtain a replacement at the Registration Desk. Consent to Use of Photographic Images Meals and Refreshments Registration and attendance at, or participation in, Health Datapalooza constitutes agreement by the registrant to Health Data Consortium’s use and distribution of (both now and in the future) the attendee’s image or voice in photographs, videotapes, electronic reproductions, and audiotapes of the meeting’s events and activities. Morning Breaks Lost and Found Please turn in any found items to the Health Datapalooza Registration Desk. If you misplace an item, please check at the Registration Desk during registration hours. At the end of the conference, lost items will be turned over to the hotel’s Security Department. Learn, Network, and Win • Monday, June 1 10:45 am – 11:05 am Marriott Ballroom Foyer • Tuesday, June 2 10:35 am – 10:55 am Marriott Ballroom Foyer • Wednesday, June 3 10:15 am – 10:35 am Marriott Ballroom Foyer & Washington Foyer Afternoon Breaks • Monday, June 1 3:00 pm – 3:20 pm Outside session rooms – Various locations Attend sessions, connect with other attendees and exhibitors, and win great prizes! Simply download the Health Datapalooza mobile app, and check out the Game feature for questions and objectives. Complete the Game “challenges” that are assigned by scanning the QR code or answering the questions correctly to earn points. Learn more by downloading the app at www.eventmobi.com/hdp2015 • Tuesday, June 2 2:20 pm – 2:40 pm Outside session rooms – Various locations Internet • Tuesday, June 2 11:50 am – 1:05 pm Exhibit Hall A & Lincoln 2-3-4 Complimentary standard wireless internet is available so you can check your emails and tweet about the great sessions you are attending and the exhibitors/sponsors you are visiting within the Exhibit Hall. Use the following network to access internet at Health Datapalooza: •Network: Marriott Conference •Passcode: HDP2015 Transportation and Parking Taxis are available at the entrance to the hotel. The Woodley Park Metro Station which connects to the Red Line is located next to the hotel. Parking is available at the hotel at the following rates: •Self-Parking: $41 • Valet Parking: $46 3:55 pm – 4:15 pm Outside session rooms – Various locations Lunches • Monday, June 1 12:30 pm – 1:45 pm Exhibit Hall A • Wednesday, June 3 11:50 am – 2:30 pm Marriott Ballroom Salons 2 & 3 Evening Networking Receptions • Welcome Reception Sunday, May 31 5:30 pm – 7:00 pm Maryland & Virginia • The Disruptive Social Monday, June 1 4:35 pm – 6:30 pm Exhibit Hall A • MGE (Meet, Greet & Eat) Reception Tuesday, June 2 5:30 pm – 7:00 pm Marriott Ballroom Salon 1 Join the conversation at #hdpalooza I 5 Speaker Ready Room The Speaker Ready Room is located in Park Suite 8217. All presenters are requested to check in at the Speaker Ready Room at least two hours prior to their scheduled presentation. Even if you have already submitted your presentation in advance and have no changes, please check to confirm that the uploaded presentation file is correct. Speaker Ready Room hours are: • Sunday, May 31 4:00 pm – 7:00 pm • Monday, June 1 7:00 am – 7:00 pm • Tuesday, June 2 7:00 am – 7:00 pm • Wednesday, June 3 7:00 am – 12:00 pm Mobile App information Health Datapalooza has a mobile event app you can use to view and create your own schedule, connect with other attendees, complete event surveys, share your Health Datapalooza experience, and more! This app is available as a downloadable app for Apple, Android, BlackBerry, and Windows, or as a mobile website. You can access the mobile app three different ways: • Download the app in your device’s app store by searching for HDP 2015 www.rowdmap.com • Access the app at http://eventmobi.com/hdp2015 • Scan the QR code Once you have accessed the app, it will store itself automatically in your browsing cache, making itself available for offline use. Turn your WiFi off or place your device on airplane-mode to use the cached version of the app. Follow @hdconsortium on Twitter. Visit Health Data Consortium at Booth #513 More info can be found on the app Special Recognition Challenges Health Data Liberators Award The Obesity Challenge The Health Data Consortium’s Health Data Liberators Award recognizes extraordinary contributions and leadership in the liberation of health data, helping to accelerate the pace and multiply the volume of data available to innovators in order to foster the creation of products and services to improve health and healthcare. The Award is presented annually and will be bestowed to the recipient at Health Datapalooza 2015 on Wednesday, June 3, during the Closing Luncheon in the Marriott Ballroom. HDC Chief Executive Officer Chris Boone and Charles Ornstein, a representative of last year’s award recipients (ProPublica’s reporting team of their data-driven series “The Prescribers”), will present the award. The Health Data Consortium, U.S. Department of Health & Human Services, National Health Services of the United Kingdom, and de Beaumont Foundation will be taking the stage at Health Datapalooza on Monday, June 1, regarding a groundbreaking initiative to improve health and well-being in both the U.S. and U.K. Don’t miss this exciting announcement! Consumers’ Circle Health Datapalooza recognizes that consumers and/or patients are the nexus for considering the benefits and challenges of applying health data. In an effort to more strongly engage the citizen interests in the health data ecosystem, the Health Data Consortium sponsors the Consumers’ Circle to enable public representation in a meaningful way to contribute expert viewpoints and considerations to the dialogue. The participants and sponsors of Health Datapalooza benefit from this experience by gaining new perspectives and opportunities for obtaining patient- or consumer-specific inputs on new services, non-monetary benefits of data and information services, community-level values, and the potential to establish longer term enrichment through partnerships. Circle members will be present in many aspects of Health Datapalooza and contribute their knowledge of the consumer and patient perspective to the health data discussion. Fourteen advocates comprise this year’s Consumers’ Circle: Meryl Bloomrosen, Asthma and Allergy Foundation of America Rene Cabral-Daniels, Community Care Network of Virginia Loran Cook, Billian’s HealthDATA Mark Gorman, Unaffiliated Francie Grace, CatchAndHoldConsulting.com Adrian Gropper, Patient Privacy Rights Support the HDC George Thomas Post-Graduate Fellowship! At last year’s Health Datapalooza, the Health Data Consortium launched the George Thomas Post-Graduate Fellowship in honor of George Thomas, a pioneer of the open data movement who understood not only data and technology, but the power that the two combined can have in creating a healthier world. This annual fellowship supports one individual for a year of graduate work focused on key problems in data infrastructure and architecture that could be applied to health and health care. If you believe in the power of data and innovation to improve health care, contribute to our matching campaign and double your donation. To make your contribution, simply visit the Health Data Consortium home page (www.healthdataconsortium.org) and click on the “Donate Now” button. Support budding academic talent in health data today! Geraldine Gueron, The Wikilife Foundation Krishnan Iyer, mohCare Carly Medosch, Unaffiliated Casey Quinlan, Mighty Casey Media + Patients for Clinical Research Daniel Rode, Dan Rode & Associates N. Lee Rucker, Enhance Value Walter Weiss, Mobile Medical Care, Inc Katrina Wells, Curiosity Saved the Kat For more information about Health Data Consortium, visit www.healthdataconsortium.org or follow @hdconsortium on Twitter. Join the conversation at #hdpalooza I 7 HEALTH DATAPALOOZA 2015 SPONSORS* P L AT I N U M GOLD S I LV E R *As of May 8, 2015 8 I Health Datapalooza 2015 More info can be found on the app HEALTH DATAPALOOZA 2015 MEDIA PARTNERS* *As of May 8, 2015 Join the conversation at #hdpalooza I 9 SCHEDULE-AT-A-GLANCE Sunday, May 31 4:00 pm - 7:00 pm Registration Open 5:30 pm - 7:00 pm Welcome Reception Location: Lobby Level of Marriott Wardman Park Location: Maryland & Virginia Monday, June 1 7:00 am - 8:00 am Yoga 7:00 am - 7:00 pm Registration Open Location: Washington 1-2 Location: Lobby Level of Marriott Wardman Park 9:00 am - 10:35 am Opening General Session Location: Marriott Ballroom Featuring: Christopher Boone, Chief Executive Officer, Health Data Consortium; David Knott, Chair, Health Datapalooza Steering Committee, Senior Partner, McKinsey & Company Main Stage Emcee: Kavita Patel, MD, MS, Managing Director of Clinical Transformation, Brookings Institution Keynote Speaker: Esther Dyson, Founder, HICCup App Demo: Sensentia Panel: Big Changes from Big Data in Health Care Moderator: Ceci Connolly, Managing Director, Health Research Institute, PricewaterhouseCoopers Panelists: Bob Kocher, MD, Partner, Venrock; Farzad Mostashari, MD, Founder, Aledade; Ed Park, Executive Vice President & COO, Athenahealth Challenge Announcement 10:45 am - 11:05 am Break Location: Marriott Ballroom Foyer 11:05 am - 12:30 pm General Session Location: Marriott Ballroom Panel: The Power of Transparency and Data to Remake Health Care Moderator: Sarah Kliff, Senior Editor, Vox Panelists: Niall Brennan, Chief Data Officer, Centers for Medicare & Medicaid Services; Bernard Lo, MD, President, Greenwall Foundation; Nick Sinai, Venture Partner, Insight Venture Partners App Demo: The Advisory Board Company 12:00 pm - 7:00 pm Exhibit Hall Open Location: Exhibit Hall A 12:00 pm - 7:00 pm Mini Golf Location: Exhibit Hall A 12:30 pm - 1:45 pm Lunch Location: Exhibit Hall A 12:30 pm - 6:30 pm App Demo Booth Open 1:00 pm - 3:30 pm DataLab 1:00 pm - 3:30 pm Healthcare Transformer Showcase 1:00 pm - 4:30 pm Genius Bar Open 1:00 pm - 6:20 pm Apps Expo Live Demos 10 I Health Datapalooza 2015 Location: Exhibit Hall A - Booth #309 Location: Lincoln 2 Organizer: Startup Health Location: Lincoln 3-4 Location: Exhibit Hall A - Booth #407 Location: Washington 5-6 More info can be found on the app SCHEDULE-AT-A-GLANCE (CONT.) 1:45 pm - 3:00 pm Track: Clinical Care Track: Data Science & Infrastructure Track: General Track: Impact Track: Innovator Track: Patient/Consumer Track: Special Panels Session: Innovation in Action: From Algorithms to Clinical Change Session: Transforming Location Health Data To Meaningful National Benchmarks Session: Leveraging Big Data for Better Quality Measurement Session: Applications of Transparency: From Visibility to Action Session: Personalized Medicine: When Will We Get There? What’s the Path Forward? Session: Patient Hackers: The #WeAreNotWaiting Movement and the Way Forward for Open Device Data Session: The Future of Health Data is on FHIR! Location: Virginia Location: Washington 1-2 Location: Delaware Location: Washington 4 Location: Maryland Location: Washington 3 Location: Lincoln 6 3:00 pm - 3:20 pm 3:20 pm - 4:35 pm Break Location: Outside of session rooms - Various locations Track: Clinical Care Track: Data Science & Infrastructure Track: General Track: Impact Track: Innovator Track: Patient/Consumer Track: Special Panels Session: How Do You Get Clinical Validation From PatientGenerated and Open Health Data in Obsteric Care? Session: Moving Beyond Sensational Outliers to Meaningful Analysis, Interpretation, and Application of Public Health Care Session: Copyright Issues and Customer Outcome Data Session: Insurer Perspectives: Health Plan Strategy and Investment Session: How Businesses Are Using Data to Select and Best Utilize Health Care Centers of Excellence Session: Using Data & Technology to Enable Better Patient Health, Support and Care Session: Using Open International Health Data in Decision-Making Location: Virginia Location: Washington 1-2 Location: Delaware Location: Washington 4 Location: Maryland Location: Washington 3 Location: Lincoln 6 4:35 pm - 6:30 pm The Disruptive Social Location: Exhibit Hall A Featured Speaker: Todd Park, Technology Advisor, Executive Office of the President, The White House Join the conversation at #hdpalooza I 11 SCHEDULE-AT-A-GLANCE (CONT.) Tuesday, June 2 7:00 am - 8:00 am Fun Run Sponsored by: Stride Health Location: Marriott Wardman Park Hotel (Outside of 24th St. Entrance) 7:00 am - 8:00 am Yoga 7:00 am - 7:00 pm Registration OpenLocation: Lobby Level of Marriott Wardman Park Location: Washington 1-2 9:00 am - 10:35 am General Session Location: Marriott Ballroom Main Stage Emcee: Thomas Goetz, Co-Founder, Iodine Fireside Chat: Bruce Broussard, President and Chief Executive Officer, Humana Moderator: Kavita Patel, MD, MS, Managing, Director of Clinical Transformation, Brookings Institution App Demo: Healthy Communities Institute Panel: Rethinking Healthcare Delivery with 21st Century Data Moderator: Susan Dentzer, Senior Policy Advisor, Robert Wood Johnson Foundation Panelists: Patrick Conway, Deputy Administrator for Innovation & Quality, CMS Chief Medical Officer, Centers for Medicare & Medicaid Services; Karen DeSalvo, Acting Assistant Secretary for Health, National Coordinator for Health Information Technology, U.S. Department of Health & Human Services; Tim Kelsey, National Director for Patients & Information, NHS England; Todd Park, Technology Advisor, Executive Office of the President, The White House; Joe Selby, Executive Director, Patient-Centered Outcomes Research Institute 10:35 am - 10:55 am Break Location: Marriott Ballroom Foyer 10:55 am - 11:50 am General Session Location: Marriott Ballroom Keynote Speaker: Andy Slavitt, Acting Administrator, Centers for Medicare & Medicaid Services Fireside Chat: Aaron Levie, Co-Founder, Box Moderator: Aneesh Chopra, Co-Founder and Executive Vice President, Hunch Analytics App Demo: HealthLabs 11:00 am - 5:45 pm Exhibit Hall Open Location: Exhibit Hall A 11:00 am - 5:45 pm Mini Golf Location: Exhibit Hall A 11:50 am - 1:05 pm Lunch 12:05 pm - 1:05 pm Track: Special Panels Location: Exhibit Hall A & Lincoln 2-3-4 Session: Data, Drugs, and Diversion: HIT Tools and the Prescription Drug Epidemic Sponsored by: Surescripts Location: Lincoln 2-3-4 12:25 pm - 4:45 pm Apps Expo Live Demos 12:30 pm - 5:00 pm App Demo Booth Open Location: Exhibit Hall A - Booth #309 1:00 pm - 4:15 pm Genius Bar Open Location: Exhibit Hall A - Booth #407 12 I Health Datapalooza 2015 Location: Washington 5-6 More info can be found on the app SCHEDULE-AT-A-GLANCE (CONT.) 1:05 pm - 2:20 pm Track: Clinical Care Track: Data Science & Infrastructure Track: General Track: Impact Track: Innovator Track: Patient/Consumer Track: Special Panels Session: Role of Data in a Time of Massive Healthcare Transformation Session: No, You Can’t Always Get What You Want: Getting What You Need From HHS Session: A Delicate Balance: A Town Hall on Healthcare Data Privacy and Security Issues Session: Public Program Changes, Private Sector Benefits Session: Open Data for Social Determinants of Health Session: Patient-Generated Health Data in the Real World Session: Using Open Data to Promote Entreprenearship and Innovation in India Location: Virginia Location: Washington 1-2 Location: Delaware Location: Washington 4 Location: Maryland Location: Washington 3 Location: Lincoln 6 2:20 pm - 2:40 pm 2:40 pm - 3:55 pm Break Track: Clinical Care Track: Data Science & Infrastructure Track: General Track: Impact Session: Democratizing Health Quality Improvement Session: Old School Data Sets, Rebooted, Repurposed, and Creating Killer New Value Session: Government Insights on Privacy Rules in the Health IT Tech Era Location: Virginia Location: Washington 1-2 Location: Delaware 3:55 pm - 4:15 pm 4:15 pm - 5:30 pm Location: Outside of session rooms - Various locations Track: Patient/Consumer Track: Special Panels Session: Health Plans Collaborating with Providers Session: Value-Based Care: Going All In Session: Leveraging the Potential of Patient-Generated Data: Progress and Opportunities Session: Centers for Medicare & Medicaid Services Data: Policies, Programs & Plans Location: Washington 4 Location: Maryland Location: Washington 3 Location: Lincoln 6 Break Location: Outside of session rooms - Various locations Track: Clinical Care Track: Data Science & Infrastructure Session: Clinical Transformation to Address Care Gaps and Improve Quality: Reflections on a Unique Platform Session: Direct-to-Consumer Data Structures and Scientists for Your GovernmentSponsored DTC Business Session: Turning Health Data into Investigative Journalism Location: Virginia Location: Washington 1-2 Location: Delaware Track: General 4:15 pm - 5:30 pm Track: Special Panels 5:30 pm - 7:00 pm Track: Innovator MGE (Meet, Greet & Eat) Reception Track: Impact Track: Innovator Track: Patient/Consumer Session: Providers Operating Health Plans Session: Navigating the FDA Review Process for Health Innovators Session: iConquerMS™ Patient-Powered Research: Kicking Butt and Taking No Names in the Fight Against Disease Location: Washington 4 Location: Maryland Location: Washington 3 Session: Healthcare Entreprenears Bootcamp: Matching Public Health Data with Real-World Business Models Location: Lincoln 2-3-4 Sponsored by: Esri Location: Marriott Ballroom Salon 1 Join the conversation at #hdpalooza I 13 SCHEDULE-AT-A-GLANCE (CONT.) Wednesday, June 3 7:00 am - 12:00 pm Registration Open Location: Lobby Level of Marriott Wardman Park 8:30 am - 10:15 am General Session Location: Marriott Ballroom Salons 2 & 3 Main Stage Emcee: Bryan Sivak, former Chief Technology Officer, U.S. Department of Health & Human Services Keynote Speaker: Glyn Elwyn, BA, MD, MSc, PhD, Physician-Researcher, The Dartmouth Institute for Health & Clinical Practice Fireside Chat: Dhanurjay “DJ” Patil, PhD, Chief Data Scientist and Deputy Chief Technology Officer for Data Policy, White House Office of Science and Technology Policy Moderator: Alyssa Bereznak, NationalCorrespondent, Yahoo News App Demo: Kuveda, Inc. Panel: How Leading Healthcare Companies Are Powering Their Businesses with Big Data Moderator: David Knott, Senior Partner, McKinsey & Company Panelists: Tim Ferris, MD, Senior Vice President, Massachusetts General Hospital and Partners HealthCare; Eric Perakslis, Executive Director, Center for Biomedical Informatics, Harvard; David Watson, CEO, Cal INDEX 10:15 am - 10:35 am 10:35 am - 11:50 am Break Location: Marriott Ballroom Foyer & Washington Foyer Track: Clinical Care Track: Data Science & Infrastructure Track: General Track: Impact Track: Innovator Track: Patient/Consumer Session: Myths vs. Reality: The Current State of Consumer Access and Use of Their Digital Health Data Session: But What if I Want to Share? Contributing Your Own Data to Foster Public Good Session: Challenges Facing Public Access to VA Health Data Session: The Role of Retailers in the U.S. Healthcare System Session: Innovative ValueBased Uses of Open Data Session: Engaging Patients in Generating and Using Big Data Location: Lincoln 2 Location: Washington 1-2 Location: Lincoln 3 Location: Washington 4 Location: Lincoln 6 Location: Washington 3 11:50 am - 2:30 pm Closing Luncheon Location: Marriott Ballroom Salons 2 & 3 Health Data Consortium Overview Health Data Liberators Award Keynote Speaker: Steven Brill, Founder, Court TV and The American Lawyer, Author Panel: How State and Local Governments are Using Big Data to Transform Their Healthcare Systems Moderator: Karen DeSalvo, MD, MPH, MSc, National Coordinator for Health Information Technology, U.S. Department of Health & Human Services Panelists: Greg Moody, Director, Ohio Office of Healthcare Transformation; Michael Nutter, Mayor, City of Philadelphia Announcements Keynote Speaker: Sylvia Mathews Burwell, Secretary, U.S. Department of Health & Human Services 14 I Health Datapalooza 2015 CONCORDIUM2015 Data and Knowledge Transforming Health CONCORDIUM2015 Data and Knowledge Transforming Health SEPT21-22,2015 CONCORDIUM2015 Washington, DC DataSponsored and Knowledge Transforming Health SEPT21-22,2015 by: AcademyHealth Washington, DC Sponsored by: AcademyHealth SEPT21-22,2015 Washington, DC Sponsored by: AcademyHealth Introducing Concordium 2015: A New AcademyHealth Conference Introducing Concordium 2015: Transforming the health care delivery system requires • Practice/Program managers A New AcademyHealth Conference an understanding of how best to use electronic health • Technologists and informaticians Introducing Concordium 2015: AGENDA HIGHLIGHTS A New AcademyHealth Conference AGENDA HIGHLIGHTS data for research quality improvement. 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Presenters and participants at the meeting will include: collaborations across safety netTuckson systems and • Reed V.Salinas, Tuckson, Managing Director, Health Gilbert Director of Patient Centered Care, population health will beRehabilitation highlighted throughout the Connections, LLC and President Elect, American Rancho Los Amigos National Center meeting. Telemedicine Association • Reed V. Tuckson, Managing Director, Tuckson Health • John Wilbanks, Chief Sage Connections, LLC andCommons President Officer, Elect, American Bionetworks CONFIRMED PLENARY SPEAKERS Telemedicine Association • Lewis G. Sandy, Vice President, • John Wilbanks, Chief Senior Commons Officer, Sage Clinical concordium2015.academyhealth.org Advancement, UnitedHealth Group Bionetworks • Gilbert Salinas, Director of Patient Centered Care, concordium2015.academyhealth.org Rancho Los Amigos National Rehabilitation Center • Reed V. Tuckson, Managing Director, Tuckson Health Connections, LLC and President Elect, American Telemedicine Association AcademyHealth’s EDM Forum was created through a cooperative agreement from the Agency for Healthcare Research and Quality (AHRQ) Grant #U13 HS19564-010. Ongoing support for the EDM Forum comes from AHRQ Grant #U18 HS022789-01. • Data scientists and analysts • Health system executives (CEOs, CIOs, and CDOs) APP DEMOS See first-hand the innovation that occurs when health data meets app technology. Live app demonstrations will take place on the Health Datapalooza main stage and the live app demo area. App demo companies will also be featuring their products at the App Demo Booth in the Exhibit Hall. Monday, June 1 Tuesday, June 2 Featured App Demos – Main Stage Featured App Demos – Main Stage Location: Marriott Ballroom Location: Marriott Ballroom 9:35 am 11:25 am Sensentia The Advisory Board Company 9:25 am 11:15 am Healthy Communities Institute HealthLabs Apps Expo Live Demos Apps Expo Live Demos Moderators: Stephen Agular, Managing Director, Zaffre Investments; Shefa Gordon, PhD, Acting Director, Office of Program Planning and Analysis, National Eye Institute Location: Washington 5-6 Time: 1:00 pm - 6:20 pm Moderators: Shefa Gordon, PhD, Acting Director, Office of Program Planning and Analysis, National Eye Institute; Mark Tomaino, Senior Industry Executive, Welsh, Carson, Anderson & Stowe Location: Washington 5-6 Time: 12:25 pm - 4:45 pm TimeCompany TimeCompany 1:00 pm 1:05 pm 1:17 pm 1:29 pm 1:41 pm 1:53 pm 2:05 pm 2:17 pm 2:29 pm 2:41 pm 2:53 pm 3:05 pm 3:17 pm 3:29 pm 5:17 pm 5:29 pm 5:41 pm 5:53 pm 6:05 pm 6:17 pm Welcome HealthLucid Wellth 3M Health Information Systems Gather Health Ostonics Mana Health Allscripts My Clinical Outcomes Symptify Inc. Mental Affect AEGIS.net, Inc. Personal Air Quality Systems Pvt Ltd. Break DocSpot FindTheBest Health&Code Software Solutions MobiDox Health Technologies, Inc. The Ohio State University Closing 16 I Health Datapalooza 2015 12:25 pm 12:30 pm 12:42 pm 12:54 pm 1:06 pm 1:18 pm 1:30 pm 1:42 pm 1:54 pm 2:06 pm 2:18 pm 2:30 pm 2:42 pm 2:54 pm 3:06 pm 3:18 pm 3:42 pm 3:54 pm 4:06 pm 4:18 pm Welcome Partnership of UNC Chapel Hill and Crohn’s & Colitis Foundation of America Esri @Point of Care CVOffice, LLC Intrigma, Inc. Audacious Inquiry for CRISP Break Caremerge Noblis Avhana Health Caspio, Inc. Klio Health realFIT, Inc. TimeDoc Break Healthy Me Mobile Solutions Carevoyance Tapasvi Clin-MolBio Solutions, Inc. Amida Technology Solutions More info can be found on the app APP DEMOS Tuesday, June 2 (cont.) Wednesday, June 3 App Expo Live Demos Featured App Demos – Main Stage TimeCompany 4:30 pm Dimensional Dosing Systems, Inc. 4:42 pmClosing Location: Marriott Ballroom 9:25 am Kuveda, Inc. APP DEMO BOOTH Monday, June 1 Tuesday, June 2 Location: Exhibit Hall A - Booth #309 Time: 12:30 pm - 6:30 pm Location: Exhibit Hall A - Booth #309 Time: 12:30 pm - 5:00 pm TimeCompany(s) TimeCompany(s) 12:30 pm 1:00 pm 1:30 pm 2:00 pm 2:30 pm 3:00 pm 3:30 pm 4:00 pm 4:30 pm 5:00 pm 5:30 pm 6:00 pm 12:30 pm 1:00 pm 1:30 pm 2:00 pm 2:30 pm 3:00 pm 3:30 pm 4:00 pm 4:30 pm DocSpot; FindTheBest Sensentia; The Advisory Board Company Health & Code Software Solutions Amida Technology Solutions; Carevoyance Dimensional Dosing Systems, Inc.; Tapasvi Clin-MolBio Solutions, Inc. MobiDox Health Technologies, Inc.; The Ohio State University Klio Health TimeDoc; Healthy Me Mobile Solutions HealthLabs; HealthLucid Partnership of UNC Chapel Hill and Crohn’s & Colitis Foundation of America; Wellth Esri; 3M Health Information Systems Avhana Health; Caspio, Inc. Kuveda, Inc.; Health Communities Institute Gather Health; Caremerge Ostonics; Mental Affect Mana Health; realFIT, Inc. Allscripts Intrigma, Inc.; My Clinical Outcomes Audacious Inquiry for CRISP; Symptify, Inc. @Point of Care; AEGIS.net, Inc. Noblis Join the conversation at #hdpalooza I 17 SPECIAL EVENTS Monday, June 1 7:00 am – 8:00 am Yoga Location: Washington 1-2 Pre-registration required Awaken your mind, body, and spirit with a yoga session. Towels will be provided; attendees are encouraged to bring their own mat. 12:00 pm – 7:00 pm Mini Golf Location: Exhibit Hall A Think you have the skills to earn a green jacket? Test your luck at our sixhole mini links golf area! Network with sponsors, attendees, and exhibitors as you try to sink a hole-in-one! 1:00 pm - 3:30 pm Healthcare Transformer Showcase Location: Lincoln 3-4 The Healthcare Transformer Showcase is an opportunity to experience breakthrough digital health innovations and meet the entrepreneurs transforming the space. The event will include a fireside chat with key innovation stakeholders, StartUp Health entrepreneurs pitching their innovations, and structured networking for HDP attendees to make meaningful connections with the entrepreneurs and fellow attendees. Organizer: StartUp Health 1:00 pm – 3:30 pm DataLab Location: Lincoln 2 HHS has so much data! Medicare, substance abuse and mental health, social services and disease prevention are only some of the MANY topical domains where HHS provides huge amounts of free data for public consumption. It’s all there on HealthData.gov! Don’t know how the data might be useful for you? In the DataLab you’ll meet the people who collect and curate this trove of data assets as they serve up their data for your use. But if you still want inspiration, many of the data owners will co-present with creative, insightful, innovative users of their data to truly demonstrate its alternative value for positive disruptions in health, health care, and social services. 18 I Health Datapalooza 2015 Moderator: Damon Davis, U.S. Department of Health & Human Services Panelists: Natasha Alexeeva, CEO, Caretalia; Christina Bethell, PhD, MBA, Johns Hopkins University; Lily Chen, PhD, National Center for Health Statistics; Manuel Figallo, SAS; Reem Ghandour, DrPH, MPA, Office of Epidemiology and Research, Maternal and Child Health Bureau; Jennifer King, U.S. Department of Health & Human Services; Brooklyn Lupari, SAMHSA; Vicki Mays, PhD, University of California, Los Angeles; Rick Moser, PhD, National Cancer Institute; Chris Powers, PharmD, Centers for Medicare and Medicaid Services; Elizabeth Young, RowdMap, Inc. More info can be found on the app Tuesday, June 2 7:00 am – 8:00 am Fun Run Location: Marriott Wardman Park Hotel (Outside of 24th St. Entrance) Pre-registration required Sponsored By: H E A L T H Stretch your legs and network with the fellow event participants on threemile or five-mile runs throughout scenic Rock Creek Park. 7:00 am – 8:00 am Yoga Location: Washington 1-2 Pre-registration required Awaken your mind, body, and spirit with a yoga session. Towels will be provided; attendees are encouraged to bring their own mat. 11:00 am – 5:45 pm Mini Golf Orchestrators: Sujata Bhatia, MD, PhD, Harvard University; Niall Brennan, Chief Data Officer, Centers for Medicare & Medicaid Services; Mohit Kaushal, MD, Partner Aberdare Ventures and NCHVS Data Group; Joshua Rosenthal, PhD, RowdMap Inc. and NACHVS Data Group; Marshall Votta, Leverage Health Solutions White Hats (Panelists): Christopher Boone, PhD, Chief Executive Officer, Health Data Consortium; Jim Chase, Minnesota Community Measurement David Portnoy; US Department of Health & Human Services IDEA Lab – External; Arnaub Chatterjee, Data Science, Insights and Partnership, Merck Innovation Fellow ; Lauren Choi, Senior Director, Premier Healthcare Alliance; Michelle De Mooy, Deputy Director, Consumer Privacy Project, Center for Democracy and Technology; Margo Edmunds, PhD, Vice President, Evidence Generation and Knowledge Translation, AcademyHealth; Geraldine Gueron, Founder, The Wikilife Foundation and Data Donors.org, University of Buenos Aires; Jessica Kahn, Director, Data and Systems Group, Medicaid Statistical Information System and Children’s Health Insurance Program Services, Centers for Medicare & Medicaid Services; Elizabeth Mitchell, Co-Chair, Center for Healthcare Transparency at Network for Regional Healthcare Improvement; Maksim Tsvetovat, CTO, OpenHealth; Sreenivas Rangan Sukumar, PhD, Oak Ridge National Lab; David Wennberg, MD, Director Emeritus, The Dartmouth Institute; Niam Yaraghi, PhD, Fellow, Brookings Institution Location: Exhibit Hall A Think you have the skills to earn a green jacket? Test your luck at our sixhole mini links golf area! Network with sponsors, attendees, and exhibitors as you try to sink a hole-in-one! 4:15 pm - 5:30 pm Healthcare Entrepreneurs Boot Camp: Matching Public Health Data with Real-World Business Models Location: Lincoln 2-3-4 If you’ve ever considered starting something using health data–whether a product, service, or offering in an existing business, or a start-up company to take over the world–this is something you won’t want to miss. In this highly-interactive, games-based brew-ha, we pack the room full of flat-out gurus to get an understanding of what it takes to be a healthcare entrepreneur. Your guides will come from finance and investment; clinical research and medical management; sales and marketing; technology and information services; operations and strategy; analytics and data science; government and policy; business, product, and line owners from payers and providers; and some successful entrepreneurs who have been there and done it for good measure. We’ll take your idea from the back of a napkin and give you the know-how to make it a reality! Visit Health Data Consortium at Booth #513 Join the conversation at #hdpalooza I 19 DETAILED AGENDA Sunday, May 31 11:05 am – 12:30 pm 4:00 pm – 7:00 pm Location: Marriott Ballroom Registration Open Location: Lobby Level of Marriott Wardman Park 5:30 pm – 7:00 pm Welcome Reception Location: Maryland & Virginia All registered Health Datapalooza attendees are welcome! General Session Panel: The Power of Transparency and Data to Remake Health Care Moderator: Sarah Kliff, Senior Editor, Vox Panelists: Niall Brennan, Chief Data Officer, Centers for Medicare & Medicaid Services; Bernard Lo, MD, President, Greenwall Foundation; Nick Sinai, Venture Partner, Insight Venture Partners Monday, June 1 App Demo: The Advisory Board Company 7:00 am – 7:00 pm Exhibit Hall Open Registration Open Location: Exhibit Hall A Location: Lobby Level of Marriott Wardman Park 12:00 pm – 7:00 pm 12:00 pm – 7:00 pm 7:00 am – 8:00 am Mini Golf Yoga Location: Exhibit Hall A Location: Washington 1-2 Pre-registration required Think you have the skills to earn a green jacket? Test your luck at our six-hole mini links golf area! Network with sponsors, attendees, and exhibitors as you try to sink a hole-in-one! Awaken your mind, body, and spirit with a yoga session. Towels will be provided; attendees are encouraged to bring their own mat. 12:30 pm – 1:45 pm 9:00 am – 10:35 am Lunch Opening General Session Location: Exhibit Hall A Location: Marriott Ballroom 12:30 pm – 6:30 pm Featuring: Christopher Boone, PhD, Chief Executive Officer, Health Data Consortium; David Knott, PhD, Chair, Health Datapalooza Steering Committee, Senior Partner, McKinsey & Company App Demo Booth Main Stage Emcee: Kavita Patel, MD, MS, Managing Director of Clinical Transformation, Brookings Institution 1:00 pm - 3:30 pm Keynote Speaker: Esther Dyson, Founder, HICCup Location: Lincoln 3-4 App Demo: Sensentia See page 18 for more details Panel: Big Changes from Big Data in Health Care 1:00 pm – 3:30 pm Moderator: Ceci Connolly, Managing Director, Health Research Institute, PricewaterhouseCoopers Panel: Bob Kocher, MD, Partner, Venrock; Farzad Mostashari, MD, Founder, Aledade; Ed Park, Executive Vice President & COO, Athenahealth Location: Exhibit Hall A - Booth #309 See page 16-17 for listing Healthcare Transformer Showcase DataLab Location: Lincoln 2 See page 18 for more details 1:00 pm – 4:30 pm Genius Bar Open Challenge Announcement Location: Exhibit Hall A – Booth #407 10:45 am – 11:05 am 1:00 – 6:20 pm Location: Marriott Ballroom Foyer Location: Washington 5-6 Break Apps Expo Live Demos See page 16-17 for listing 20 I Health Datapalooza 2015 More info can be found on the app 1:45 pm – 3:00 pm 1:45 pm – 3:00 pm Location: Virginia Location: Delaware This session will explore how advanced data analytics can lead to change at a clinical level. First, attendees will hear from an actual innovation center that deals with the intersection of entrepreneurs and clinicians. Then, we will hear about novel uses of data and clinical information to advance sepsis care. Finally, we will understand how big data can better identify practical solutions for payors and providers. Panelists: Sean Benson, Wolters Kluwer; Basit Chaudhry, IBM Clinicians and hospitals are increasingly being paid based on their measured quality, with HHS recently announcing that it will have 85% of Medicare payments tied to quality or value by 2016. However, quality measurement is still largely calculated from healthcare claims data, which limits the scope and quality of the results. New data sources, such as patient registries, mobile devices, or repositories of clinical and claims data, can provide for new insights and better assessments of quality. This panel will explore some of these new data innovations, their potential benefits, and strategies for leveraging them further. Track: Clinical Care Moderator: Christine Cassel, MD, National Quality Forum 1:45 pm – 3:00 pm Panelists: Tony Hussain, IBM; Aaron McKethan, RxAnte; Paul Wallace, MD, Optum Labs Innovation in Action: From Algorithms to Clinical Change Moderator: Nick Dawson, MHA, Johns Hopkins Sibley Innovation Hub Transforming Local Health Data to Meaningful National Benchmarks Location: Washington 1-2 Leveraging Big Data for Better Quality Measurement Track: General Like gambling, hard liquor, and other supply-sensitive economies, healthcare is local. Academics talk of access to care, price, cost, and even supply driving demand — all things that happen in a local context driven by geography. The problem is that different communities want different things, do different things, and keep data on different things in different ways. But we need geographic benchmarks to make sense of the particularities of my community’s data. As the Data Liberation movement matures, it faces a major challenge in tying all of these different things together to create national benchmarks. This session explores the work; best practices; case studies; and hits, misses, and challenges from the Center for Healthcare Transparency, a Robert Wood Johnson recipient whose network of regional data entities is on track to produce provider performance information for 50% of the U.S. by 2020… dark hollers and deep cities included. Moderator: Scott Howell, Optum; Amy Nguyen Howell, MD, MBA, FAAFP, CAPG Panelists: Craig Brammer, The Health Collaborative; Jim Chase, MHA, Minnesota Community Measurement; Jonathan Mathieu, PhD, Center for Improving Value in Health Care Track: Data Science & Infrastructure Join the conversation at #hdpalooza I 21 DETAILED AGENDA (CONT.) 1:45 pm – 3:00 pm Applications of Transparency: From Visibility to Action Location: Washington 4 As transparency in health care has emerged as a crucial enabler towards achieving the Triple Aim, myriad sources and types of information have become available in the last few years. Join this session to learn new ways of understanding the behaviors of patients and providers, and novel approaches to payment and delivery already underway. Moderator: Ben Harder, U.S. News & World Report Panelists: Elizabeth Mitchell, NRHI; Jeanne Pinder, ClearHealthCosts; Josh Rosenthal, PhD, RowdMap, Inc. Track: Impact 1:45 pm – 3:00 pm Personalized Medicine: When Will We Get There? What’s the Path Forward? Location: Maryland This session will move past the hype of wearables. It will feature innovators who are taking these new data sources and making them actionable, via implementation in care settings, integration into the medical record, and really doing something with the data that changes healthcare outcomes. Moderator: Jodi Daniel, JD, MPH, U.S. Department of Health & Human Services Panelists: Seth Bokser, MD, MPH, UCSF Benioff Children’s Hospital and Moore Women’s Hospital; Rajiv Kumar, Stanford Children’s Health; Jafar Shenasa, Proteus Digital Health Track: Innovator 1:45 pm – 3:00 pm Patient Hackers: The #WeAreNotWaiting Movement and the Way Forward for Open Device Data Location: Washington 3 Diabetes patients are digital health natives. Daily life is constantly calibrated based on streams of medical device data, but integrating the relevant data streams is difficult. Medical device companies have been slow to act, so patients and caregivers have found ways to ‘hack’ their devices to access and integrate data and create tools that enable them to better manage their health. At the same time, diabetes patients worked with the FDA to raise concerns and recommend changes to regulations governing medical device data access and interoperability. In turn, the FDA has embraced this patient input working with–rather than against–the patient hackers. While diabetes patients may be leading the charge, more data-generating medical devices are 22 I Health Datapalooza 2015 being developed to manage and monitor a range of chronic illnesses. This panel will feature leaders in the patient hacker movement discussing the tools they’ve developed, lessons they’ve learned, and how they envision this movement developing. Moderator: Anna McCollister-Slipp, Galileo Analytics Panelists: Doug Kanter, Databetes; Howard Look, Tidepool; Bakul Patel, Food & Drug Administration, Centers for Devices & Radiological Health; Ken Stack, Perceptus.org Track: Patient/Consumer More info can be found on the app 1:45 pm – 3:00 pm 3:20 pm – 4:35 pm Location: Lincoln 6 Moving Beyond Sensational Outliers to Meaningful Analysis, Interpretation, and Application of Public Health Care The Future of Health Data is on FHIR! You have probably been hearing a lot in the news about Health Level 7’s (HL7) most recent standard, FHIR (Fast Healthcare Interoperability Resources). This session is designed to shed light on the next generation standards framework that leverages the latest web standards and applies a tight focus on implementation. FHIR represents a significant advance in accessing and delivering data while offering enormous flexibility. In December 2014, in an effort to address the recommendations of the JASON Task Force, HL7 launched the Argonaut Project in collaboration with leading health care IT vendors and providers to accelerate the development and adoption of FHIR. This session will help the audience better understand the FHIR adoption trajectory as well as the future promise of what this standard makes possible to improve patient care. Presenter: Charles Jaffe, MD, PhD, Health Level 7 Track: Special Panels 3:00 pm – 3:20 pm Break Location: Outside session rooms – Various locations 3:20 pm – 4:35 pm How Do You Get Clinical Validation from Patient-Generated and Open Health Data in Obstetric Care? Location: Virginia This presentation will be two pronged. First, it will include a brief overview of our initial study at George Washington University and its results. Second will be a panel featuring Doctors Jill Krapf, Kathyrn Marko, and Andrew Meltzer, clinicians at the George Washington University, who were the principal investigators. In our study, more than 150 expectant mothers were recruited for the program and subsets of those patients were provided with the full Babyscripts experience that included connected devices. We found that Babyscripts enhances patient satisfaction with their prenatal care, improves patient compliance and engagement, and could potentially decrease healthcare costs by avoiding unnecessary visits for low-risk patients. Our goal for this session is to demonstrate the active collaboration that is required between clinicians, entrepreneurs, and technologists to leverage this new paradigm of health data in clinical care and commercialize digital healthcare solutions. Moderator: Anish Sebastian, Babyscripts Panelists: Jill Krapf, MD, The George Washington University; Katie Marko, MD, FACOG, The George Washington University School of Medicine and Health Sciences; Andrew Meltz, MD, 1EQ Track: Clinical Care Location: Washington 1-2 HHS just backed up the data truck, dumping boatloads of Medicare data after decades of Freedom of Information Act requests. When it first hit, the media went wild and outliers from fraud, waste, and abuse made headlines. As the Data Liberation movement matures, one of its chief challenges comes from communicating the value of the public data beyond sounds bites and sensational stories to meaningful inputs. This session has the best of the journalists in the heart of this story. Charles Ornstein is a Pulitzer Prize winner. Tom McGinty is with the Wall Street Journal, the media organization that broke the story. Jennifer Schneider of Castlight Health is at the forefront of the next wave of work, mining the data for meaning and application in a post-reform world. This session will showcase some finds, share cool stories, do a bit of reflection around the nature of reporting and the popular appetite for specific stories, and sketch out the path forward from sound bite to sound practice. Moderator: Joshua Rosenthal, PhD, RowdMap, Inc. Panelists: Tom McGinty, The Wall Street Journal; Charles Ornstein, ProPublica; Jennifer Schneider, MD, MS, Castlight Health Track: Data Science & Infrastructure 3:20 pm – 4:35 pm Copyright Issues and Customer Outcome Data Location: Delaware The use of data within health has grown exponentially in the past five years. Whilst it often gives pointers to the care process, the predicted growth in whole scale change in pathways hasn’t followed. This has been partly because of untapped data, lack of customer feedback and triangulation with other health systems. Three years ago the U.S. and U.K. governments came together, initially to promote transparency of data and latterly to address this void. A joint concordant has enabled close working of the NHS and HHS and sharing of data items. The session will demonstrate how copyright issues can and have been addressed in relation to Patient Reported Outcome Measures (PROMs), giving access to the largest repository of ‘customer outcome data’ within health care. The session will also demonstrate the use of simple data to turn into knowledge with respect to the most common joint replacement surgery performed in both countries and its relation to obesity. Moderator: Kevin Larsen, MD, Office of the National Coordinator of Health IT Panelists: Mo Dewji, NHS England; Emma Doyle, NHS England Track: General Join the conversation at #hdpalooza I 23 DETAILED AGENDA (CONT.) 3:20 pm – 4:35 pm 3:20 pm – 4:35 pm Location: Washington 4 Location: Lincoln 6 As new approaches to the collection and use of data change the way we deliver and pay for health care, they also change the business of investing in health care. Join this session to learn how health plans fund entrepreneurs and diversify their own businesses. A wealth of healthcare data exists, but often this data is not widely disseminated or used to their maximal benefit. In this workshop, we will explore how open international health data can be repurposed to promote accountability and datadriven decision making. We will discuss policies and projects that increase access to health data, such as the USAID-funded MEASURE Evaluation Dataverse; how these data can be used to evaluate development projects; and challenges and lessons learned in publicly sharing data. Insurer Perspectives: Health Plan Strategy and Investment Moderator: Terry Stone, MBA, Oliver Wyman Panelists: Sander Duncan, New Ventures at North Shore Ventures; Kent Marquardt, Premera Blue Cross; Bjorn Thaler, Aetna Track: Impact Using Open International Health Data in Decision-Making Moderator: Brandon Pustejovsky, USAID 3:20 pm – 4:35 pm Panelists: Eran Bendavid, MD, MS, Stanford University; Jon Crabtree, University of North Carolina, Chapel Hill; Irum Zaidi, Tech Friends How Businesses are Using Data to Select and Best Utilize Health Care Centers of Excellence Track: Special Panels Location: Maryland Join us to explore the next frontier of data and analytics being used to improve healthcare quality and reduce cost. We will have a discussion with leading industry innovators who will describe their processes for using data to select Centers of Excellence and will discuss how they are using employee data and Center of Excellence outcome data to drive care and cost decision making. This is a session we don’t want any of our self-insured business partners to miss. Moderator: E.J. Holland, U.S. Department of Health & Human Services 4:35 pm – 6:30 pm The Disruptive Social Location: Exhibit Hall A Featured Speaker: Todd Park, Technology Advisor, Executive Office of the President, The White House Tuesday, June 2 7:00 am – 7:00 pm Panelists: Mary Bourland, MD, Sisters of Mercy; Rick Chelko, EdisonHealth Network; Tom Emerick, Emerick Consulting LLC; Remy Szykier, Aegis Health Security Registration Open Track: Innovator Fun Run 3:20 pm – 4:35 pm Using Data & Technology to Enable Better Patient Health, Support and Care Lobby Level of Marriott Wardman Park 7:00 am – 8:00 am Location: Marriott Wardman Park Hotel (Outside of 24th St. Entrance) Pre-registration required Sponsored By: Location: Washington 3 Patient, provider, and caregiver access to health data is increasingly viewed as essential to the delivery of quality care, improving health, and enabling innovation. This panel will share insights from ongoing initiatives to connect patients and consumers with their health data via mobile and other technologies to support health and wellness goals, such as treatment adherence and diabetes management. Moderator: Joe Greenwood, MBA, MaRS Discovery District Panelists: Mischa Dick, Healthcare Excellence Institute, LLC; Jaffie Rajan, Merck; Jason Victor, Merck Track: Patient/Consumer 24 I Health Datapalooza 2015 H E A L T H Stretch your legs and network with the fellow event participants on three-mile or five-mile runs throughout scenic Rock Creek Park. 7:00 am – 8:00 am Yoga Location: Washington 1-2 Pre-registration required Awaken your mind, body, and spirit with a yoga session. Towels will be provided; attendees are encouraged to bring their own mat. More info can be found on the app 9:00 am – 10:35 am 12:05 pm – 1:05 pm Location: Marriott Ballroom Location: Lincoln 2-3-4 Main Stage Emcee: Thomas Goetz, Co-Founder, Iodine Sponsored by: General Session Data, Drugs, and Diversion: HIT Tools and the Prescription Drug Epidemic Fireside Chat: Bruce Broussard, President and Chief Executive Officer, Humana Moderated by Kavita Patel, MD, MS, Managing Director of Clinical Transformation, Brookings Institution App Demo: Healthy Communities Institute Panel: Rethinking Healthcare Delivery with 21st Century Data Moderator: Susan Dentzer, Senior Policy Advisor, Robert Wood Johnson Foundation Panelists: Patrick Conway, Deputy Administrator for Innovation & Quality, CMS Chief Medical Officer, Centers for Medicare & Medicaid Services; Karen DeSalvo, Acting Assistant Secretary for Health, National Coordinator for Health Information Technology, U.S. Department of Health & Human Services; Tim Kelsey, National Director for Patients & Information, NHS England; Todd Park, Technology Advisor, Executive Office of the President, The White House; Joe Selby, Executive Director, Patient-Centered Outcomes Research Institute 10:35 am – 10:55 am Break Location: Marriott Ballroom Foyer 10:55 am – 11:50 am A key goal of the HITECH Act was to create digital tools for solving public health problems. This session will address HIT solutions for a public health problem that the CDC has declared a national epidemic: abuse, overdose, and death from prescription painkillers. As the volume of prescriptions for opioids has exploded over the past decade, so has the incidence of overdose and death from the misuse of these powerful drugs. Over the past five years, pharmacy and law enforcement regulators at the federal and state levels have collaborated to legalize electronic prescribing of controlled substances (EPCS) so that public health, law enforcement, and the provider community can flag suspicious patient and prescriber behavior and intervene to prevent high-risk dispensing. Today, most pharmacies are prepared to receive digital prescription orders for controlled substances. With EPCS now legal in nearly every state, we are poised to deploy a technology that has the potential to reduce deaths. Moderator: Susan Dentzer, Senior Policy Advisor, Robert Wood Johnson Foundation Panelists: Tricia Lee Wilkins, PharmD, MS, PhD, Office of Clinical Quality and Safety Office of the National Coordinator for Health IT; Miya R. Gray, Surescripts General Session Track: Special Panel Location: Marriott Ballroom 12:25 pm – 4:45 pm Keynote Speaker: Andy Slavitt, Acting Administrator, Centers for Medicare & Medicaid Services Apps Expo Live Demos Fireside Chat: Aaron Levie, Co-Founder, Box See page 16-17 for listing 12:30 pm – 5:00 pm Moderated by Aneesh Chopra, Co-Founder and Executive Vice President, Hunch Analytics App Demo: HealthLabs Location: Washington 5-6 Apps Demo Booth Location: Exhibit Hall A - Booth #309 11:00 am – 5:45 pm See page 16-17 for listing Location: Exhibit Hall A Genius Bar Open Exhibit Hall Open 11:00 am – 5:45 pm 1:00 pm – 4:15 pm Location: Exhibit Hall A – Booth #407 Mini Golf Location: Exhibit Hall A Think you have the skills to earn a green jacket? Test your luck at our six-hole mini links golf area! Network with sponsors, attendees, and exhibitors as you try to sink a hole-in-one! 11:50 am – 1:05 pm Lunch Location: Exhibit Hall A & Lincoln 2-3-4 Join the conversation at #hdpalooza I 25 DETAILED AGENDA (CONT.) 1:05 pm – 2:20 pm Role of Data in a Time of Massive Healthcare Transformation Location: Virginia This session will introduce concepts of big data but will help attendees drill down on priorities for venture investments, innovative health systems, and other researchers. Moderator: Sandeep Pulim, MD, @Point of Care Panelists: Mayank Sharma, PhD, IBM Research; Anand Veeravagu, MD, Stanford University School of Medicine Track: Clinical Care 1:05 pm – 2:20 pm No, You Can’t Always Get What You Want: Getting What You Need from HHS Location: Washington 1-2 While more data is better than less, pushing out any ol’ data isn’t good enough. As the Data Liberation movement matures, the folks releasing the data face a major challenge in determining what’s the most valuable stuff to put out. How do they move from smorgasbord to intentionally curated data releases prioritizing the highest-value data? Folks at HHS are wrestling with this, going out of their way to make sure they understand what you want and ensure you get the yummy data goodies you’re craving. Learn how HHS is using your requests and feedback to share data differently. This session explores the HHS new initiative, the Demand-Driven Open Data (DDOD): the lean startup approach to public-private collaboration. A new initiative out of HHS IDEA Lab, DDOD is bold and ambitious, intending to change the fundamental data sharing mindset throughout HHS agencies - from quantity of datasets published to actual value delivered. Moderator: Damon Davis, U.S. Department of Health & Human Services Panelists: Phil Bourne, National Institute of Health; Niall Brennan, Centers for Medicare & Medicaid Services; Jim Craver, MMA, Centers for Disease Control & Prevention; Chris Dymek, EdD, U.S. Department of Health & Human Services; Taha Kass-Hout, Food & Drug Administration; Brian Lee, MPH, Centers for Disease Control & Prevention; David Portnoy, MBA, U.S. Department of Health & Human Services Track: Data Science & Infrastructure 1:05 pm – 2:20 pm A Delicate Balance: A Town Hall on Healthcare Data Privacy and Security Issues Location: Delaware Improving how our healthcare system uses data holds great promise to advance research and patient care. Many across the healthcare community are working hard to find ways to achieve this potential. But the sensitive and personal nature of these data demands careful, thoughtful, inclusive deliberations about ownership, stewardship, and “terms of use” in pursuing 26 I Health Datapalooza 2015 laudable goals. This Town Hall, organized by the Patient-Centered Outcomes Research Institute (PCORI), presents one such opportunity. Representatives of patients, researchers, clinicians, and experts in ethical, legal, and social issues in data use, a number of whom are working with PCORI on developing a new patient-centered clinical research network, will discuss the considerations that must be addressed if we are to realize our hopes for a patient-centered, learning healthcare system. Moderator: Deven McGraw, JD, Manatt, Phelps & Phillips Panelists: Michael Kappelman, MD, MPH, University of North Carolina at Chapel Hill; Sally Okun, RN, MMHS, PatientsLikeMe; Sharon Terry, Genetic Alliance Track: General 1:05 pm – 2:20 pm Public Program Changes, Private Sector Benefits Location: Washington 4 Many government agencies have recently implemented significant changes or launched new programs in response to budget pressures and regulatory reforms. Join this session to learn how these have led to new services and information sources that reduce government cost and improve opportunities for private sector collaboration. Moderator: Shawn Bishop, MPP, SB Health Policy Consulting Panelists: Barbara Gage, Brookings Institution; Kitt Winter, CPA, MBA, Social Security Administration Track: Impact 1:05 pm – 2:20 pm Open Data for Social Determinants of Health Location: Maryland This session will focus on combining different datasets to reach vulnerable and low-income patients. We will bring a different perspective to the conversation about open health data by focusing on organizations and companies working to ensure that everyone has the chance to benefit from health technology and open data, including those in underserved populations. We’ll also highlight the many ways in which creative uses of open data can empower physicians and social workers to do their jobs more efficiently and in partnership. Moderator: Farzad Mostashari, Aledade, Inc Panelists: Rebecca Coelius, MD, Code for America; Joseph Flesh, Purple Binder; Stacy Lindau, MD, MAPP, University of Chicago; Rishi Manchanda, MD, MPH, HealthBegins Track: Innovator More info can be found on the app 1:05 pm – 2:20 pm 2:40 pm – 3:55 pm Location: Washington 3 Location: Virginia Patients, from the worried well to those with chronic conditions, are tracking their health more and more as devices and tools appear on GooglePlay and the AppStore, or are crowd-built on sites like Github. Sharing that data – from symptom trackers, activity monitors, blood pressure cuffs, WiFi-enabled scales – with medical providers is problematic, making much of that data invisible to the patient’s clinical team. Moderated by a healthcare journalist and blogger who is also an e-patient, the panel will talk about the gaps and opportunities presented by patient generated data – how it might be incorporated into patient medical records, how it could inform care in and out of the medical office or hospital, where it might disrupt standard testing and diagnostic models, and how it might empower patients as primary stakeholders in their health outcomes. Quality improvement is the cornerstone of the health system. It empowers health enterprises to report and monitor against targets, compare each other, and continually improve. In the health industry today, there are a dazzling array of measures and data sets. Unfortunately, measures are all too often implemented in silos, locked into back-office systems, with little standardization or ability to be shared. They can take years to implement and months of effort to update and maintain. In this presentation we propose and discuss a revolutionary approach that connects quality improvement to the heart of the new generation health organization. This approach is being piloted at the Mayo Clinic. It empowers a large community of leading quality and safety improvement executives to author, publish, and share standardized quality measure with unparalleled ease. Professionals everywhere can then connect their data and use them in practice, where they have greatest impact on patient outcomes. Patient-Generated Health Data in the Real World Moderator: Casey Quinlan, Mighty Casey Media Panelists: Mandi Bishop, Dell; Greg Meyer, Cerner Corp.; Danny Sands, MD, MPH, Society for Participatory Medicine; Scott Strange, Scott Strange, LLC Track: Patient/Consumer 1:05 pm- 2:20 pm Using Open Data to Promote Entrepreneurship and Innovation in India Democratizing Health Quality Improvement Presenters: Paul Magelli, Apervita, Inc.; Craig Stancl, Mayo Clinic Track: Clinical Care 2:40 pm – 3:55 pm Old School Data Sets, Rebooted, Repurposed, and Creating Killer New Value Location: Lincoln 6 Location: Washington 1-2 Access to data is a barrier to health innovation globally. With 800 million mobile phone users and a growing community of technology entrepreneurs, India is poised for major growth in health IT innovation. This panel, which includes representatives from the Office of the Registrar General in India (which oversees the collection of vital statistics) and U.S. experts, will explore how increasing access to open data can encourage entrepreneurship and support the development of low cost applications and services to promote health in India and the U.S. Possible opportunities for U.S.-India collaboration will also be discussed. As the Data Liberation movement matures, one of the challenges it faces is using current data sets in new and creative ways, applying decades of research to create new value propositions in both Fee-for-Service and Pay-for-Value arenas. This session explores the limits of current data systems and statistical models by using alternative traditional gold-standard data sets, either as-is or rebooted. David Wennberg uses social determinants and health behaviors to lay out the framework for a population-health approach to reform, while Jessica Kahn showcases the new Transformed Medicaid Statistical Information System. Ramon Martinez puts our national benchmarks in global perspective using data from World Health Organization and the Institute of Health Metrics and Evaluation, showing you easy ways to access and understand tried-andtrue data sets. We walk through a couple of case studies and ensure the audience has access to the old dogs and knows how to teach them new tricks. Chair: Indu Subaiya, Co-Chairman and CEO, Health 2.0 Speakers from the Government of India: Rohit Bhardwaj, Deputy Registrar General, Office of the Registrar General of India, Ministry of Home Affairs, Central Government of India; Rajeev Kumar, Deputy Director, Office of the Registrar General of India, Ministry of Home Affairs, Central Government of India Moderator: Michael Painter, Robert Wood Johnson Foundation Reaction from U.S. experts: Rushika Fernandopulle, CEO, Iora Health; Ramesh Kolluru, Vice President of Research at University of Louisiana at Lafayette Panelists: Jessica Kahn, MPH, Centers for Medicare & Medicaid Services; Ramon Martinez, Pan American Health Organization; David Wennberg, MD, MPH, NNEACC Track: Special Panels Track: Data Science & Infrastructure 2:20 pm – 2:40 pm Break Location: Outside sessions rooms - Various Locations Join the conversation at #hdpalooza I 27 DETAILED AGENDA (CONT.) 2:40 pm – 3:55 pm Government Insights on Privacy Rules in the Health IT Tech Era Location: Delaware Join us for this discussion between HHS’ Office of Civil Rights and Office of the National Coordinator on how a regulatory agency can best do its job, ensure appropriate guidance to the rapidly developing business of mHealth and consumer-generated health tools, and promote compliance with the Privacy and Security Rules. Topics covered will include OCR’s role as the regulator responsible for HIPAA policy, including guidance and enforcement and how the health data developer community can provide information to OCR and ONC to inform relevant and appropriate guidance and support an emerging economic sector. Moderator: Gus Mutscher, PricewaterhouseCoopers Panelists: Jocelyn Samuels, JD, HHS Office for Civil Rights; Lucia Savage, JD, U.S. Department of Health & Human Services Track: General 2:40 pm – 3:55 pm Health Plans Collaborating with Providers Location: Washington 4 Health plans are changing the way they collaborate with providers to manage the quality and cost of health care delivered to beneficiaries sponsored by employers and the government. Join this session to learn about how payment and delivery models are changing, the challenges ahead, and the role information technology is playing in facilitating the transition. Moderator: Jack Lewin, MD, Cardiovascular Research Foundation Panelists: Sachin Jain, CareMore; Charles Kennedy, Aetna Track: Impact 2:40 pm – 3:55 pm Value-Based Care: Going All In Location: Maryland Primary care providers are embracing new models of payment that focus on value rather than volume. As we focus on better care for individuals and populations, we need to leverage data to better understand both where we are and where we need to go next. The speakers will review their organization’s success in aggregating data and using analytics to improve the health of communities. Presenters: Aneesh Chopra, Hunch Analytics; Rushika Fernandopulle, MD, MPP, Iora Health Track: Innovator 2:40 pm – 3:55 pm Leveraging the Potential of Patient-Generated Data: Progress and Opportunities data available to drive improvements in health and care, and foster a learning health system. Despite the proliferation of such data through these new sources, it is highly fragmented and often not fully leveraged for important uses, such as quality improvement and research. In this session, panelists will share examples of how patient generated health data are informing and improving care, democratizing and accelerating the research process, and generating new insights about the impact of genetic variants on health. Moderator: Alison Rein, MS, AcademyHealth Panelists: Kathy Hudson, PhD, National Institutes of Health; Joshua Mann, SHARE For Cures; Drew Schiller, Validic Track: Patient/Consumer 2:40 pm – 3:55 pm Centers for Medicare & Medicaid Services Data: Policies, Programs & Plans Location: Lincoln 6 CMS will present information on new and updated data and information products of interest to health researchers, policymakers, and data innovators. Panelists will present on: new policies and mechanisms for access to CMS data; public release of provider utilization and payment data; new/updated information visualization tools; and other publicly available data files. Moderator: Niall Brennan, Centers for Medicare & Medicaid Services Panelists: Christine Cox, Centers for Medicare & Medicaid Services; Allison Oelschlaeger, Centers for Medicare & Medicaid Services; Chris Powers, PharmD, Centers for Medicare & Medicaid Services; Debbie Pusateri, Centers for Medicare and Medicaid Services; Andrew Shatto, Centers for Medicare and Medicaid Services Track: Special Panels 3:55 pm – 4:15 pm Break Location: Outside sessions rooms - Various Locations 4:15 pm – 5:30 pm Clinical Transformation to Address Care Gaps and Improve Quality: Reflections on a Unique Platform Location: Virginia The MedConcert Fracture Liaison Service (FLS) platform provides a unique opportunity to address the nearly 80% post-fracture care gap means for practices and hospitals to automate, benchmark, and improve their performance around selected osteoporosis/post-fracture quality measures and patient care, and create a registry that can collect and report on each site. Moderator: Mitesh Rao, MD, MHS, Northwestern Medicine Location: Washington 3 Panelists: Debbie Zeldow, MBA, Ostonics; Simone Karp, RPh, CECity Consumer-facing technologies and new initiatives to collect and sequence genetic information are dramatically expanding the variety and volume of Track: Clinical Care 28 I Health Datapalooza 2015 More info can be found on the app 4:15 pm – 5:30 pm Direct-to-Consumer Data Structures and Scientists for your Government-Sponsored DTC Business Location: Washington 1-2 The Harvard Business Review just named data scientist as the “Sexiest Job for the 21st Century.” Data science is even making its way into historically un-Silicon Valley healthcare, but it looks different – more Direct-to-Consumer (DTC). As the Data Liberation movement matures, one of the challenges it faces is recognizing, embracing, and even mastering DTC data structures and data science and cultivating next-gen open health data scientists. In this session, we look at what happens when you take something like Facebook’s social graph structures and then apply it to healthcare data. In this case, Bam!, you’ve got DocGraph. This session explores some classic hypothesis-led, hypothesis-generating visualization and how undergrads take to these DTC structures in healthcare. Then we cap it off by taking high-end data scientists and turning them loose in an effort to apply classic healthcare data to the DTC of healthcare reform. 4:15 pm – 5:30 pm Providers Operating Health Plans Location: Washington 4 Health systems across the country are moving beyond collaborating with health plans... and offering their own insurance products. Join this session to hear how providers are applying clinical data sources and best practices to manage customers both as patients and plan members. Moderator: Ryan Stewart, TripleTree Panelists: Alan Murray, North Shore LIJ-CareConnect Insurance Company; Pamela Peele, PhD, UPMC Health Plan Track: Impact Moderator: Fred Trotter, DocGraph/CareSet Panelists: Ben Coleman, Moravian College; Andres Colubri, PhD, Broad Institute of MIT and Harvard; Sreenivas Rangan Sukumar, PhD, Oak Ridge National Laboratory Track: Data Science & Infrastructure 4:15 pm – 5:30 pm Turning Health Data into Investigative Journalism Location: Delaware Data analysis is a key element of investigative journalism. In reforming the health care system, journalists play key roles in identifying inequities and fraud, as well as documenting what works and what doesn’t work. Data has made this job easier. The release of large healthcare data sets within the past two years has allowed reporters to compare variation at the doctor level and create tools that translate this information for consumers. This session will be a roundtable discussion on techniques, insights, and the importance of open data in journalism. Moderator: Charles Ornstein, ProPublica Panelists: Ben Harder, U.S. News & World Report; Meghan Hoyer, USA Today; Dan Keating, The Washington Post; Tom McGinty, The Wall Street Journal Track: General Join the conversation at #hdpalooza I 29 DETAILED AGENDA (CONT.) 4:15 pm – 5:30 pm 5:30 pm – 7:00 pm Location: Maryland Location: Marriott Ballroom Salon 1 Navigating the FDA Review Process for Health Innovators Understanding how to approach the FDA 510k process is a daunting prospect for many early stage companies developing products for health and health care. Confusion still exists around which class a device or application falls under, and how to best structure the application before the 90-day review period. In this panel, speakers will discuss the 510k process, the new MMS guidance, and valuable lessons learned from companies that have successfully gone through the process. Moderator: Robert Jarrin, JD, Qualcomm Incorporated Panelists: Anand Iyer, PhD, MBA, WellDoc, Inc.; Corinna Lathan, PhD, PE, AnthroTronix; Jennifer Leib, ScM, CGC, CRD Associates; Bakul Patel, Food & Drug Administration, Centers for Devices & Radiological Health MGE (Meet, Greet & Eat) Reception Sponsored by: Socialize and recap the day’s event. Eat, drink, and be merry at our evening networking reception. Wednesday, June 3 7:00 am – 12:00 pm Registration Open Location: Lobby Level of Marriott Wardman Park Track: Innovator 8:30 am – 10:15 am 4:15 pm – 5:30 pm Location: Marriott Ballroom Salons 2 & 3 iConquerMS™ Patient-Powered Research: Kicking Butt and Taking No Names in the Fight Against Disease Location: Washington 3 Engaged consumers are no longer satisfied with traditional models of research that place patients in the passive role of guinea pig. Patients are eager to share information and contribute their health data to solve medical mysteries. Driven by increasing consumer demand for knowledge, an innovative new model for the collection, integration, aggregation, and analysis of data has emerged in which the patient is both participant and research collaborator. With an award from the Patient-Centered Outcomes Research Institute (PCORI), the Accelerated Cure Project for Multiple Sclerosis, in collaboration with its members and partners, has launched iConquerMS™, a patient-driven, patient-governed national initiative to facilitate the use of health data from 20,000 enrolled participants to speed and enhance research that matters most to MS patients. As it evolves, iConquerMS™ can be the model by which other communities of patients conquer disease utilizing Big Data. Moderator: Lisa Emrich, MM, BME, iConquerMS™ Initiative of Accelerated Cure Project General Session Main Stage Emcee: Bryan Sivak, Former Chief Technology Officer, U.S. Department of Health & Human Services Fireside Chat: Dhanurjay ”DJ” Patil, PhD, Chief Data Scientist & Deputy Chief Technology Officer for Data Policy, White House Office of Science and Technology Policy Moderated by Alyssa Bereznak, National Corespondent, Yahoo News Keynote Speaker: Glyn Elwyn, BA, MD, MSc, PhD, Physician-Researcher, The Dartmouth Institute for Health & Clinical Practice Panel: How Leading Healthcare Companies Are Powering Their Businesses with Big Data Moderator: David Knott, Senior Partner, McKinsey & Company Panelists: Tim Ferris, MD, Senior Vice President, Massachusetts General Hospital and Partners HealthCare; Eric Perakslis, Executive Director, Center for Biomedical Informatics Harvard; David Watson, CEO, Cal INDEX Panelists: Kenneth Buetow, PhD, Arizona State University; Marcia Kean, Feinstein Kean Healthcare; Robert McBurney, PhD, Accelerated Cure Project for MS App Demo: Kuveda, Inc. Track: Patient/Consumer Location: Marriott Ballroom Foyer & Washington Foyer 4:15 pm - 5:30 pm Healthcare Entrepreneurs Boot Camp: Matching Public Health Data with Real-World Business Models Location: Lincoln 2-3-4 See page 19 for more details 30 I Health Datapalooza 2015 10:15 am – 10:35 am Break More info can be found on the app 10:35 am – 11:50 am 10:35 am – 11:50 am Myths vs. Reality: The Current State of Consumer Access and Use of Their Digital Health Data Challenges Facing Public Access to VA Health Data Location: Lincoln 3 Location: Lincoln 2 The VA provides health care to 8.7 million veterans on an annual basis and collects data through its electronic health record system. Most of the data collected during health care is available throughout the VA for operations and for research. Open access to health data poses challenges from ensuring patient privacy to implementing solutions that provide data without the need for manual preparation. The VA, a federal partner with the Federal Health Architecture, recognizes how these challenges impact the effective collection, use, and sharing of key data and is working to improve public access to specific data sets. In this presentation, the VA will discuss the current methods being used to share data with requestors, the challenges of these methods, and how the agency is working to improve open access to VA data. Join the Office of Consumer eHealth from the Office of the National Coordinator for Health IT (ONC), for a first look at results from its 2014 Consumer Survey. This annual survey reveals key insights around consumer attitudes, experiences, and expectations accessing their health data online and using health IT. Find out the myths vs. reality about how consumers are using their health data, trends in consumer engagement with their health data, and health IT and consumer expectations for engaging with their providers. We’ll also discuss the federal strategy for increasing patient engagement with their health data and how you can get involved in the Blue Button Initiative. Attendees will leave with resources to guide consumers in finding and using their health data and what else is needed. Presenters: Erin Siminerio, MPH, U.S. Department of Health & Human Services; Vaishali Patel, Office of the National Coordinator for Health IT Presenter: Rachel Harrison-Gordon, U.S. Department of Veterans Affairs Track: Clinical Care 10:35 am – 11:50 am 10:35 am – 11:50 pm But What if I Want to Share? Contributing Your Own Data to Foster Public Good Location: Washington 1-2 If you want your own health data, you can hit the Blue Button and it’s yours to do with as you see fit. The Blue Button project is a stunning success story with about 8 gajillion people (give or take) downloading their personal medical histories. But what if you want to share your data? As the Data Liberation movement matures, it faces a number of challenges around developing open data. How can folks participate in open data if they don’t have six Masters degrees in data science, but simply want to share and help others? How can we protect and secure individuals’ privacy by creating data that meets research needs — by allowing people to opt in or otherwise? Finally, how do we best collect and analyze new sources of data from personal life streams and connect this unstructured data to the health care system? Moderator: Niall Brennan, Centers for Medicare & Medicaid Services Panelists: Geraldine Gueron, PhD, The Wikilife Foundation; Aaron Seib, National Association for Trusted Exchange; Maksim Tsvetovat, OpenHealth Track: Data Science & Infrastructure Track: General The Role of Retailers in the U.S. Healthcare System Location: Washington 4 Retailers are developing and expanding healthcare products and services, some as a new core focus, and others to complement their traditional businesses. Join this session to learn what industry leaders understand about their customers and how that informs their strategies to help people live healthier lives. Moderator: Maureen O’Connor, Mosaic Health Solutions Panelists: Brian Bobby, Rite-Aid; Brad Fluegel, Walgreens; Alex Hurd, Walmart; Will Shrank, CVS Track: Impact 10:35 am – 11:50 am Innovative Value-Based Uses of Open Data Location: Lincoln 6 This session will feature unique uses of government and private sector open data sources that are contributing to better consumer decision making and value based care. These exciting initiatives include unique, community-sourced guides to health care costs, revealing patterns of purchasing by consumers and creating deeper community engagement around cost transparency and the only free data set and API for information about individual medications, pill images, and drug identification. Moderator: Bryan Sivak, Former Chief Technology Officer, U.S. Department of Health & Human Services Panelists: Charles Gellman, MSHI, Qwalcare; Dale Hale, National Institutes of Health; Jeanne Pinder, clearhealthcosts.com Track: Innovator Join the conversation at #hdpalooza I 31 DETAILED AGENDA (CONT.) 10:35 am – 11:50 am Engaging Patients in Generating and Using Big Data Location: Washington 3 Clinical research requires patients to share their data, which makes it critical to engage them about privacy, security, and evidence-based care. Moreover, patients can be important for identifying what data is important about their life and their health, as well as what research questions they want answered. This session will highlight examples where patients have been engaged in generating big data resources and how big data has been applied to generate new healthcare knowledge. Moderator: Kym Martin, MBA, CNC, CFT, Cancer Catharsis, LLC Panelists: David Muntz, CHCIO, FCHIME, LCHIME, FHIMSS, GetWellNetwork; Sally Okun, RN, MMHS, PatientsLikeMe; Doris Peter, PhD, Consumer Reports; Lygeia Ricciardi, EdM, Clear Voice Consulting, LLC Track: Patient/Consumer 11:50 am – 2:30 pm Closing Luncheon Location: Marriott Ballroom Salons 2 & 3 Health Data Consortium Overview Health Data Liberators Award Keynote Speaker: Steven Brill, Founder, Court TV and The American Lawyer, Author Panel: How State and Local Governments are Using Big Data to Transform Their Healthcare Systems Moderator: Karen DeSalvo, MD, MPH, MSc, National Coordinator for Health Information Technology, U.S. Department of Health & Human Services Panelists: Greg Moody, Director, Ohio Office of Healthcare Transformation; Michael Nutter, Mayor, City of Philadelphia Announcements Keynote Speaker: Sylvia Mathews Burwell, Secretary, U.S. Department of Health & Human Services 32 I Health Datapalooza 2015 More info can be found on the app POST-CONFERENCE WORKSHOPS Join us for these hands-on trainings from 3:00 pm - 5:00 pm on Wednesday, June 3. Workshops are an additional fee, and you must be pre-registered to participate. If interested in attending, please visit the Registration Desk to have these added to your registration. Privacy Bootcamp: Helping Entrepreneurs Navigate Federal and State Privacy Laws Location: Washington 5 - 6 Organizer: Healthcare Leadership Council Instructors: Kim Gray, Chief Privacy Officer, IMS Health; Mary Grealy, President, Healthcare Leadership Council; Cora Han, Senior Attorney, Division of Privacy and Identity Protection, Federal Trade Commission; Christina Heide, Senior Health Information Privacy Policy Specialist, Office of Civil Rights, U.S. Department of Health & Human Services; Sara Juster, Associate Counsel and Privacy Officer, Surescripts No matter what type of health data your business uses, one of the most commonly asked questions entrepreneurs and innovators face is: “Do I have to comply with HIPAA?” If not, “what laws must I comply with?” The purpose of this workshop is to help entrepreneurs and start-ups understand the Privacy and Security Rules under HIPAA including breach notification. Attendees will also gain insight into other laws that they may have to comply with, even if HIPAA does not apply, including the Federal Trade Commission Act and the Fair Credit Reporting Act (FCRA). The Role of Social Media Data in Health Care: Driving Innovation, Education and Healthcare Improvement Location: Lincoln 3 Organizers: WCG Group and Health Data Consortium Instructors: Jay Bhatt, Chief Health Officer, Illinois Hospital Association; Garry Choy, Assistant Chief Medical Information Officer for Advanced Technologies, Massachusetts General Physicians Organization, Massachusetts General Hospital; Jared Hawkins, National Library of Medicine Fellow, Harvard Medical School Did you know that it was a physician, not a reporter, who broke the story about the Measles outbreak at Disneyland via Twitter earlier this year? There’s no denying it—social media plays an increasingly integral part in the healthcare space. Attend this workshop to learn how social and digital data are driving healthcare innovation and providing unmatched opportunities for education and healthcare improvement. Learn how organizations are applying social data in innovative ways across the healthcare landscape directly from those who are already reaping the benefits. "A fantastic opportunity to meet and share knowledge with people in varying fields within health care. It is only through sharing of ideas that progress is made." * *Testimonials taken from Health Datapalooza 2014 attendee evaluations. Blue Button Workshop Location: Washington 1 - 2 Organizer: U.S. Department of Health & Human Services, Office of the National Coordinator for Health IT (ONC) Instructors: Lana Moriarty, Director, Office of Consumer eHealth, ONC; Steve Posnack, Director, Office of Science and Technology, ONC; Erica Galvez, Interoperability and Exchange Portfolio Manager, ONC; Josh Mandel, MD, Software Engineer, Boston Children’s Hospital; Vaishali Patel, Senior Advisor, Office of Planning, Evaluation and Analysis, ONC; Theresa Hancock, Director of MyHealtheVet, U.S. Department of Veterans Affairs; Gajen Sunthara, Presidential Innovation Fellow, ONC While provider adoption of EHRs has hit a tipping point, consumer access to the information maintained in those systems remains low – yet steadily rising. ONC has completed national trend surveys to gain a better pulse on consumer access to their health information and ways in which they use or want to use their information. Learn how these findings are connected to consumer centric priorities outlined in the Nationwide Interoperability Roadmap and Standards Advisory. The workshop will also highlight exciting developments to improve usability of Blue Button and details for developers on how to leverage Blue Button information from federal agencies. Using ArcGIS to Create an Open Data Portal for Health Location: Washington 4 Organizer: Esri Instructor: Jared Shoultz, Health Technology Specialist, Esri An ArcGIS Open Data Portal can efficiently unlock authoritative data in your organization to increase transparency, address reporting requirements, and spur innovation. This workshop will demonstrate how to create an ArcGIS Open Data Portal for a typical health organization using ArcGIS Online and ArcGIS Desktop. Attendees will learn standard workflows to create, document, and publish data from desktop or ArcGIS Online; tips to ensure data is properly formatted; and best practices and processes for configuring ArcGIS Open Data sites. Understanding Different Health Data User Types and Serving Them Extremely Well Location: Washington 3 Organizer: Socrata and Forum One Communications Instructors: Joe Pringle, Director of Health, Socrata; Brian Pagels, Chief Impact Officer, Forum One Researchers, industry, developers, policy makers and influencers, the media, and consumers all use data very differently. Understanding how they think about data, find it, access it, and use it will help data publishers and other organizations using data be more effective. The session will explore questions such as: How can we engage our users to understand what they really want? How can we make our data easier to find and understand? How can we serve sophisticated data users without overwhelming casual users? How can we work with internal data owners and decision makers to help them think more about these audiences’ needs? How can we maximize the reach of our data to secondary and tertiary audiences? Join the conversation at #hdpalooza I 33 MAIN STAGE PANELS Monday, June 1 Tuesday, June 2 Big Changes from Big Data in Health Care Rethinking Healthcare Delivery with 21st Century Data Moderator: Ceci Connolly, Managing Director, Health Research Institute, PricewaterhouseCoopers Panelists: Bob Kocher, Partner, Venrock Farzad Mostashari, Chief Executive Officer, Aledade Ed Park, Executive Vice President and Chief Operating Officer, Athenahealth Moderator: Susan Dentzer, Senior Policy Advisor, Robert Wood Johnson Foundation Panelists: Patrick Conway, Deputy Administrator for Innovation & Quality, CMS Chief Medical Officer, Centers for Medicare & Medicaid Services Karen DeSalvo, Acting Assistant Secretary for Health, National Coordinator for Health Information Technology, U.S. Department of Health & Human Services Tim Kelsey, National Director for Patients & Information, NHS England Todd Park, Technology Advisor, Executive Office of the President, The White House Joe Selby, Executive Director, Patient-Centered Outcomes Research Institute Big data has drastically transformed the financial, manufacturing, and retail industries. Now it is beginning to transform the healthcare industry. Join us in exploring how insights from big data are changing what clinicians do, how patient behave, how health plans function, and how hospitals work. This panel will feature discussions of ground-breaking technologies utilizing big data to save money, improve care, and disrupt the status quo. The Power of Transparency and Data to Remake Health Care Moderator: Sarah Kliff, Senior Editor, Vox Panelists: Niall Brennan, Chief Data Officer, Centers for Medicare & Medicaid Services Bernard Lo, President and CEO, Greenwall Foundation Nick Sinai, Venture Partner, Insight Venture Partners Join us for this enlightening discussion that brings together perspectives from private industry, government, and academia to talk about how data transparency is transforming the healthcare space. The panel will examine data transparency’s role in the improvement of patient outcomes, challenges to obtaining greater transparency, and how further transparency can be promoted and adopted. In addition, hear how data transparency has advanced the progress of other industries and what healthcare can learn from those experiences. 34 I Health Datapalooza 2015 As a result of advances in health IT, we are experiencing a sea of change in the healthcare delivery system – from how we receive care as patients to the knowledge providers have at their fingertips to test, diagnose, and administer care. This panel will examine how we currently harness and use data in U.S. healthcare delivery, what changes are in store for the system, and where we should ultimately head to achieve optimal care for all Americans. Moreover, the panel will contrast developments in U.S. healthcare delivery with those occurring in the United Kingdom and what the U.S. can learn from innovative healthcare delivery practices abroad. More info can be found on the app Wednesday, June 3 How Leading Healthcare Companies are Powering Their Businesses with Big Data Moderator: David Knott, Senior Partner, McKinsey & Company Panelists: Tim Ferris, MD, Senior Vice President, Massachusetts General Hospital and Partners Healthcare Eric Perakslis, Executive Director, Center for Biomedical Informatics, Harvard David Watson, CEO, Cal INDEX (California Integrated Data Exchange) Leading healthcare stakeholders (e.g., payors, providers, manufacturers) are rapidly embracing big data as a key enabler as they transform themselves to respond to the changes in the healthcare industry. Join us in discussing how they are using data to drive impact, what they see as the next frontier in data and analytics, and their perspectives on the future of data sharing in the industry. This panel will feature perspectives from CIOs and senior leaders from across the healthcare system. How State and Local Governments are Using Big Data to Transform Their Healthcare Systems Moderator: Karen DeSalvo, Acting Assistant Secretary for Health, National Coordinator for Health Information Technology, U.S. Department of Health & Human Services Panelists: Greg Moody, Director, Ohio Office of Healthcare Transformation Michael Nutter, Mayor, City of Philadelphia State and local governments are at the forefront of healthcare transformation, migrating entire health economies from fee-for-service to outcomes-based payment and care delivery models. And data is at the core of state and local efforts. Governments are increasingly maximizing the data available today and accelerating efforts to unlock data across their states (e.g., through Health Information Exchanges, All-Payor Claims Databases). Join us for a conversation with the state and local healthcare leaders heading this revolution. Join the conversation at #hdpalooza I 35 KEYNOTE SPEAKERS Steven Brill Founder, Court TV and The American Lawyer Twitter: @StevenBrill Steven Brill is a longtime journalist and is the founder of Court TV and in 1979 launched the monthly magazine The American Lawyer, which is still in publication. A graduate of Yale College and Yale Law School, Steven has written for The New Yorker, The New York Times Magazine, Esquire and TIME. Bruce Broussard President and Chief Executive Officer, Humana Twitter: @BruceDBroussard Bruce Broussard became Humana’s President and Chief Executive Officer in January 2013. Prior to joining Humana, Bruce was CEO of McKesson Specialty/US Oncology, Inc. He is a member of the Business Roundtable and a member of the Board of Directors of America’s Health Insurance Plans (AHIP), also serving on AHIP’s Executive Committee. Sylvia Mathews Burwell Secretary, U.S. Department of Health & Human Services Twitter: @SecBurwell Sylvia Mathews Burwell was sworn in as the 22nd Secretary of Health & Human Services (HHS) on June 9, 2014. A resultsdriven manager, Secretary Burwell has led large and complex organizations across the public and private sectors. As the Secretary of HHS, Burwell oversees more than 77,000 employees. Prior to serving in the Administration, Burwell served as President of the Walmart Foundation in Bentonville, Arkansas. 36 I Health Datapalooza 2015 Esther Dyson Founder, HICCup Twitter: @edyson Esther Dyson is founder of HICCup.co, for Health Initiative Coordinating Council. She is an investor in multiple health and wellness businesses, and she sits on the boards of the Sunlight Foundation and the Personal Genome Foundation. Glyn Elwyn Physician-Researcher, The Dartmouth Institute for Health & Clinical Practice Twitter: @glynelwyn Glyn Elwyn, BA, MD, MSc, PhD, is a physicianresearcher at The Dartmouth Institute for Health Policy and Clinical Practice. His current focus is on the development and impact of Option Grids, tools to stimulate better conversations based on best evidence. He co-chairs the International Patient Decision Aids Standards Collaboration, and is the lead editor of Shared Decision-Making in Health Care: Achieving Evidence-Based Patient Choice (Oxford University Press, 2016). Aaron Levie Co-Founder, Box Twitter: @Levie Aaron Levie co-founded Box with friend and Box CFO Dylan Smith in 2005. Aaron is the visionary behind Box’s product and platform strategy, which is focused on incorporating the best of traditional content management with an elegant, easy-to-use user experience suited to the way people collaborate and work today. Box supports HIPAA compliant file sharing and sells to providers, payors, and life science companies around the world. Dr. DJ Patil Chief Data Scientist and Deputy Chief Technology Officer for Data Policy, White House Office of Science and Technology Policy Twitter: @dpatil DJ Patil joined the White House Office of Science and Technology Policy (OSTP) in February 2015, where he advises on policies and practices to maintain U.S. leadership in technology and innovation; fosters partnerships to maximize the nation’s return on its investment in data; and helps to attract and retain the best minds in data science to serve the public. Andy Slavitt Acting Administrator, Centers for Medicare & Medicaid Services Twitter: @ASlavitt Andy Slavitt is the Acting Administrator for the Centers for Medicare & Medicaid Services. As Acting Administrator, Slavitt is responsible for cross cutting policy and operational coordination for the agency’s Medicare, Medicaid, CHIP, and Marketplace programs. Most recently he served as Group Executive Vice President for Optum, where he was the top day-today executive leading the systems integration work and tech surge to fix HealthCare.gov. More info can be found on the app MAIN STAGE EMCEES AND MODERATORS Main Stage Emcees Thomas Goetz, MPH Thomas Goetz is co-founder of Iodine, which Time called “the Yelp of medicine.” He was previously executive editor at WIRED, and served as the first Entrepreneur-inResidence for Robert Wood Johnson Foundation, where he created Flip The Clinic, a project to transform the doctor-patient visit. His book, The Remedy, was chosen by Amazon as a Best Book of 2014. His previous book, The Decision Tree, was chosen by the Wall Street Journal as a Best Health book of 2010. Thomas also writes the LaunchPad column for Inc. Kavita Patel, MD, MS Kavita Patel is a Fellow and Managing Director at the Center for Health Policy at the Brookings Institution, where she leads research on delivery system reforms, physician payment, and healthcare workforce productivity. She is also a practicing primary care physician at Johns Hopkins Medicine and a clinical instructor at UCLA’s Geffen School of Medicine. Previously, she was a Director of Policy for The White House under President Obama and a senior advisor to the late Senator Edward Kennedy. Also Keynote Moderator for Bruce Broussard, President and Chief Executive Officer, Humana Bryan Sivak Bryan Sivak was most recently Chief Technology Officer for the U.S. Department of Health & Human Services. In this role, he was responsible for helping HHS leadership harness the power of data, technology, and innovation to improve the health and welfare of the nation. Previously, Bryan served as the Chief Innovation Officer to Maryland Governor Martin O’Malley, as Chief Technology Officer for the District of Columbia, and co-founded InQuira, Inc. and Electric Knowledge LLC, of which the latter which provided one of the world’s first Natural Language Search engines available on the web in 1998. Apps Expo Live Demo Moderators Keynote Moderators Steve Agular Alyssa Bereznak Monday, June 1 Moderator for DJ Patil, Chief Data Scientist and Deputy Chief Technology Officer for Data Policy, White House Office of Science and Technology Policy Steve Agular is a Managing Director of Zaffre Investments, Blue Cross Blue Shield of Massachusetts’ strategic investing arm. He focuses on investments in the Healthcare IT sector. Before joining Zaffre, Steve operated his own consultancy, providing management and advisory services to earlystage healthcare companies. Prior to that, he was co-founder and President of Soltazza, an environmentally-friendly coffee brewer company. Steve has extensive healthcare investment experience and his previous roles include serving as a Venture Partner at Mansa Capital, Director of M&A at Schaller Anderson (purchased by Aetna), and Investment Banker at SG Cowen. Shefa Gordon, PhD Monday, June 1, Tuesday, June 2 Shefa Gordon is Acting Director of the Office of Program Planning and Analysis at the National Eye Institute, NIH, where he coordinates NEI reporting, planning, and portfolio analysis activities, as well as serving as the legislative liaison. As a Presidential Management Fellow, he spent two years at the NIH evaluating a collaborative research program on Type 1 diabetes. He was also a Fellow on the House Ways and Means Health Subcommittee working on mental health and end-stage renal disease. Alyssa Bereznak is a New York-based National Correspondent at Yahoo News covering the intersection of politics, culture, and technology. Aneesh Chopra Moderator for Aaron Levie, Co-Founder, Box Aneesh Chopra is the former (and first) U.S. Chief Technology Officer. As an Assistant to the President, he designed the National Wireless Initiative, helped launch Startup America, and executed an “open innovation” strategy across the government built on private sector collaboration -- opening up data, convening on standards, and staffing “lean government startups.” Aneesh is currently the co-founder and executive vice president of Hunch Analytics, a technology firm focused on improving the productivity of public and regulated sectors of the economy through data analytics. Mark Tomaino Tuesday, June 2 Mark Tomaino joined Walsh, Carson, Anderson & Stowe (WCAS) as a Senior Industry Executive in 2010. He focuses on investments in the healthcare information technology industry. Mark was previously Senior Vice President, Corporate Development at The TriZetto Group. Prior to joining The TriZetto Group, Mark worked at Bausch & Lomb Incorporated in a variety of legal, strategy, and business development roles. Join the conversation at #hdpalooza I 37 EXHIBITOR LISTING ALPHABETICAL ORDER NAME BOOTH ORDER BOOTH ABILITY Network...................................................................................................................................... 500 AcademyHealth ...................................................................................................................................... 401 Agency for Healthcare Research and Quality....................................................................... 701 AHIMA............................................................................................................................................................ 403 Bureau of Economic Analysis.......................................................................................................... 801 Centers for Medicare & Medicaid Services’ Qualified Entity Medicare Data Sharing Program................................................................................................................. 808 CSC.................................................................................................................................................................. 307 Emdeon........................................................................................................................................................ 611 Esri................................................................................................................................................................... 207 Evariant......................................................................................................................................................... 209 General Biologic Investments (GBI)............................................................................................. 313 General Dynamics Information Technology (GDIT).......................................................... 705 GeoHealth US........................................................................................................................................... 702 Health 2.0...................................................................................................................................................1103 Health Affairs............................................................................................................................................. 800 IEEE.................................................................................................................................................................. 602 IMPAQ International.............................................................................................................................. 806 IMS Government Solutions.............................................................................................................. 201 Inovalon........................................................................................................................................................ 308 Innovation@HHS..................................................................................................................................... 809 Iodine............................................................................................................................................................. 803 JEN Associates, Inc. ............................................................................................................................... 406 MarkLogic.................................................................................................................................................... 802 Midas+, A Xerox Company............................................................................................................... 302 National Center for Health Statistics........................................................................................... 706 NextGen Healthcare............................................................................................................................. 412 NORC.............................................................................................................................................................. 807 PCORI............................................................................................................................................................. 503 PricewaterhouseCoopers.................................................................................................................. 300 RelevantHealth......................................................................................................................................... 805 ResDAC......................................................................................................................................................... 707 RowdMap, Inc.........................................................................................................................................1101 RxAnte........................................................................................................................................................... 708 Self Care Catalysts Inc. ........................................................................................................................ 303 Socrata.......................................................................................................................................................... 400 Surescripts................................................................................................................................................... 203 Tableau Software.................................................................................................................................... 700 Truven Health Analytics...................................................................................................................... 301 U.S. News & World Report................................................................................................................. 501 UK Trade & Investment........................................................................................................................ 413 Verizon........................................................................................................................................................... 402 38 I Health Datapalooza 2015 NAME BOOTH IMS Government Solutions.............................................................................................................. 201 Surescripts................................................................................................................................................... 203 Esri................................................................................................................................................................... 207 Evariant......................................................................................................................................................... 209 PricewaterhouseCoopers.................................................................................................................. 300 Truven Health Analytics...................................................................................................................... 301 Midas+, A Xerox Company............................................................................................................... 302 Self Care Catalysts Inc. ........................................................................................................................ 303 CSC.................................................................................................................................................................. 307 Inovalon........................................................................................................................................................ 308 General Biologic Investments (GBI)............................................................................................. 313 Socrata.......................................................................................................................................................... 400 AcademyHealth ...................................................................................................................................... 401 Verizon........................................................................................................................................................... 402 AHIMA............................................................................................................................................................ 403 JEN Associates, Inc. ............................................................................................................................... 406 NextGen Healthcare............................................................................................................................. 412 UK Trade & Investment........................................................................................................................ 413 ABILITY Network...................................................................................................................................... 500 U.S. News & World Report................................................................................................................. 501 PCORI............................................................................................................................................................. 503 IEEE.................................................................................................................................................................. 602 Emdeon........................................................................................................................................................ 611 Tableau Software.................................................................................................................................... 700 Agency for Healthcare Research and Quality....................................................................... 701 GeoHealth US........................................................................................................................................... 702 General Dynamics Information Technology (GDIT).......................................................... 705 National Center for Health Statistics........................................................................................... 706 ResDAC......................................................................................................................................................... 707 RxAnte........................................................................................................................................................... 708 Health Affairs............................................................................................................................................. 800 Bureau of Economic Analysis.......................................................................................................... 801 MarkLogic.................................................................................................................................................... 802 Iodine............................................................................................................................................................. 803 RelevantHealth......................................................................................................................................... 805 IMPAQ International.............................................................................................................................. 806 NORC.............................................................................................................................................................. 807 Centers for Medicare & Medicaid Services’ Qualified Entity Medicare Data Sharing Program................................................................................................................. 808 Innovation@HHS..................................................................................................................................... 809 RowdMap, Inc.........................................................................................................................................1101 Health 2.0...................................................................................................................................................1103 More info can be found on the app EXHIBITOR MAP 809 108 103 Join the conversation at #hdpalooza I 39 HEALTH DATAPALOOZA 2015 EXHIBITORS* ABILITY Network Booth 500 AHIMA Booth 403 CSC Booth 307 ABILITY Network is a leading healthcare technology company trusted by thousands of payers and providers across the continuum of care. Through the use of the ABILITY Network comprehensive suite of care coordination and workflow services, our customers are able to improve efficiency, reduce costs, increase cash flow, and more effectively manage the financial and clinical complexities of healthcare. Visit www.abilitynetwork.com. The premier resource for health information governance, AHIMA represents more than 71,000 health information management professionals across the globe, who are the stewards of healthcare data and information. AHIMA offers the only health data analysis credential in the industry, supporting healthcare professionals through education, training, certification, advocacy, and more. Visit www.ahima.org. Computer Sciences Corporation (CSC) is a global leader of next generation information technology services and solutions. CSC’s North American Public Sector leverages commercial best practices and proven technologies to bring scalable, more cost-effective IT solutions to government agencies seeking efficiency through innovation. For more information, visit the company’s website at www.csc.com/government. AcademyHealth Booth 401 Bureau of Economic Analysis Booth 801 AcademyHealth is a leading national organization serving the fields of health services and policy research and the professionals who produce and use this important work. Together with its members, AcademyHealth works to improve health and the performance of the health system by supporting the production and use of evidence to inform policy and practice. As part of these efforts, AcademyHealth is working to build an infrastructure of training, methods, and governance to support evolving and emerging data streams and to address relevant research questions in rigorous and novel ways. Visit www.academyhealth.org. The Bureau of Economic Analysis (BEA) is one of the world’s leading statistical agencies, recognized as a key source for the best and most comprehensive economic statistics. Visit www.bea.gov. Agency for Healthcare Research and Quality Booth 701 The Agency for Healthcare Research and Quality’s (AHRQ) mission is to produce evidence to make health care safer, higher quality, more accessible, equitable, and affordable, and to work with the U.S. Department of Health & Human Services (HHS) and other partners to make sure that the evidence is understood and used. Visit www.ahrq.gov. 40 I Health Datapalooza 2015 Centers for Medicare & Medicaid Services’ Qualified Entity Medicare Data Sharing Program Booth 808 The Centers for Medicare & Medicaid Services’ Qualified Entity Medicare Data Sharing Program makes Medicare fee-for-service (FFS) claims data and Part D prescription drug event data available to “qualified entities” (QEs) to produce publicly available provider performance reports. Visit www.qemedicaredata.org and @QEMedicareData for more information. Emdeon Booth 611 Emdeon is a leading provider of revenue and payment cycle management and clinical information exchange solutions, connecting payers, providers, and patients in the U.S. healthcare system. Emdeon’s offerings integrate and automate key business and administrative functions of its payer and provider customers throughout the patient encounter. Visit www.emdeon.com Esri Booth 207 Esri is the world leader in Geographic Information Systems (GIS). Its innovative software platform helps users to discover, use, make, and share data across their organization and out to the community. A modern location strategy for planning, monitoring, predicting, managing systems, and collaboration. Everything in health has location. Place Matters. Visit www.esri.com. More info can be found on the app Evariant Booth 209 GeoHealth US Booth 702 Health 2.0 Booth 1103 Evariant sees a future where healthcare organizations deliver efficient care solutions. We continuously innovate our healthcare CRM platform, based on a centralized communications engine capable of identifying, executing, and measuring all types of engagement initiatives. Results include greater visibility, richer engagement, and continuous improvement. Learn more at www.evariant.com. You can also connect with us on LinkedIn, Twitter, and Facebook. Our goal is to increase wellness by providing patients current and historical data based on where they live and work. GeoHealth US combines sensor and complex historical data on the environment and over 100 diseases. Using advanced analytics, GeoHealth provides valuable insights on toxic exposures and our health. Learn more at GeoHealth.us. Health 2.0 is the premiere showcase and catalyst for the advancement of new health technologies. Through a global series of conferences, thought leadership roundtables, developer competitions, pilot programs, and leading market intelligence, Health 2.0 drives the innovation and collaboration necessary to transform health and health care. Visit www.health2con.com. General Biologic Investment, Ltd. (GBI) Booth 313 GBI is an information, applications, and services company focused on the healthcare industry. Leveraging data from across the healthcare value chain, GBI creates web and mobile systems that enable individuals and organizations to make better decisions and communicate more effectively. Visit www.gbihealth.com. General Dynamics Information Technology (GDIT) Booth 705 General Dynamics Information Technology (GDIT) provides information technology (IT), systems engineering, analytic services, and training to customers in the defense, federal civilian government, health, state and local government, and commercial sectors. With approximately 28,000 professionals worldwide, GDIT delivers IT enterprise solutions and manages large-scale IT programs and services. Visit www.gdit.com. THE THOUGHT LEADER that thought leaders turn to We are an industry leader in health IT research and communications, giving our clients the edge they need to succeed in today’s competitive marketplace. We deliver timely market intelligence and research giving companies the tools and know-how to stay ahead of the market. Industry essentials Our C-level weekly market intelligence report covers healthcare IT/digital health, including both practice and consumer-focused technologies from health information management, clinical decision support, data analytics and electronic health records to mobile health apps, social health, telehealth and more. Funding and M&A reports We publish a comprehensive overview of market trends and analysis that includes easy-to-digest charts, graphs and tables, with data-driven analysis of the healthcare IT sector each quarter. Mercom is the go-to resource for VC, corporate and M&A activity. www.mercomcapital.com 1.512.215.4452 Join the conversation at #hdpalooza I 41 HEALTH DATAPALOOZA 2015 EXHIBITORS* (CONT.) Health Affairs Booth 800 IMS Government Solutions Booth 201 Iodine Booth 803 Health Affairs is the leading journal of health policy thought and research. The peer-reviewed journal is published monthly in print and online, as well as weekly web-exclusive articles at www.healthaffairs.org. The journal consistently ranks as one of the top-cited journals in health policy and health sciences. IMS Health is a leading global information, services and technology company providing the healthcare industry with comprehensive solutions to improve performance. Applying sophisticated analytics and applications, we connect more than 10 petabytes of data on diseases, treatments, costs, and outcomes to customers in pharmaceutical, consumer health, and medical device manufacturing, and in payers, providers, government, and the financial community. Additional information is available at www.imshealth.com. At Iodine, our mission is to turn people’s experience into better medicine. On our website and mobile app, we make it easy to learn from other people’s experience - and simple for people to share theirs in turn. Our growing database of more than 100,000 reports gives new insights into what medical treatments might work best for which persons, so that individuals can better decide what is right for them. We combine this data with information from clinical research and the FDA to create a new resource for finding what works. Visit www.iodine.com. IEEE Booth 602 IEEE Engineering in Medicine and Biology Society (EMBS) is the world’s largest international society of biomedical engineers and provides access to the people, practices, information, ideas, and opinions shaping one of the fastest growing fields focusing on the development and application of engineering concepts and methods to provide new solutions to biological, medical, and healthcare problems. Visit www.ieee.org. IMPAQ International Booth 806 IMPAQ International is a public policy research firm that drives value by utilizing innovative thinking and rigorous approaches to improve our clients’ policies and programs. IMPAQ provides exemplary research and consulting services through the use of impact evaluation studies, applied research, policy analysis, quantitative and qualitative data analysis, and technical assistance. Visit www.impaqint.com. LLC 42 I Health Datapalooza 2015 Inovalon Booth 308 Inovalon is a leading technology company that combines advanced cloud-based data analytics and data-driven intervention platforms to achieve meaningful insight and impact in clinical and quality outcomes, utilization, and financial performance across the healthcare landscape. Visit www.inovalon.com. Innovation@HHS Booth 809 The U.S. Department The Office of Business Management and Transformation of Health & Human Services is empowering ideas and innovation to better deliver on its mission. The HHS Idea Lab and Office of Business Management & Transformation offer unique initiatives and services to spur creative problem solving and greater efficiency. HHS IDEA LAB JEN Associates, Inc. Booth 406 JEN JEN Associates is a small business celebrating its a s s o c i a t e s 30th year working with health data. The company is a pioneer in importing, standardizing, validating, enhancing and analyzing Medicare, Medicaid, and commercial health claims, assessment, disease registry, and electronic health data. JEN links these diverse data sets and creates person-level, longitudinal records for analysis. JEN hosts the data through a secure, web-accessible platform that enables users to visualize results on demand. For more information, go to www.jen.com. MarkLogic Booth 802 For more than a decade, MarkLogic has delivered a powerful, agile and trusted Enterprise NoSQL database platform that enables organizations to turn all data into valuable and actionable information. Organizations around the world rely on MarkLogic’s enterprise-grade technology to power the new generation of information applications. MarkLogic is headquartered in Silicon Valley with offices in Washington D.C., New York, London, Frankfurt, Utrecht, and Tokyo. Visit www.marklogic.com. More info can be found on the app Midas+, A Xerox Company Booth 302 NORC Booth 807 PCORI Booth 503 With approximately 1,900 clients, Midas+ Solutions is the preferred healthcare quality outcomes improvement and strategic performance management partner. By leveraging our twenty-four years of market domain expertise, Midas+ clients outperform the median national hospital quality scores for value-based purchasing and other pay-for-performance programs. Visit www.midasplus.com. NORC at the University of Chicago is an independent research organization with more than 70 years of leadership and experience in data collection, analysis, and dissemination. NORC’s U.S. and international operations provide data and analysis that support informed decision-making in health, education, economics, crime, justice, and energy. Visit www.norc.org. The Patient-Centered Outcomes Research Institute (PCORI) is an independent, non-profit organization authorized by Congress to fund research that provides patients and those who care for them with the evidence-based information needed to make better-informed healthcare decisions. PCORI continuously seeks input from a broad range of stakeholders to guide its work. Visit www.pcori.org. National Center for Health Statistics Booth 706 The National Center for Health Statistics (NCHS) provides statistical information that guides actions and policies to improve the health of the American people. As the Nation’s principal health statistics agency, NCHS leads the way with accurate, relevant, and timely data. The NCHS exhibit will feature the latest publication and data releases. Visit www.cdc.gov/ nchs. NextGen Healthcare Booth 412 NextGen Healthcare simplifies practice operations so providers can focus on care, improve population health, and optimize value-based payments. Its integrated solutions streamline work, improve clinical and financial results, drive compliance, and enable accountable, collaborative care. Its interoperability solutions empower data exchange while its integrated billings and claims services maximize revenue. Visit www.nextgen.com. Join the conversation at #hdpalooza I 43 HEALTH DATAPALOOZA 2015 EXHIBITORS* (CONT.) PricewaterhouseCoopers Booth 300 PwC’s Public Sector Practice helps federal agencies solve complex business issues, manage risk, and add value through our comprehensive service offerings in financial management; program management; human capital; enterprise effectiveness; governance, risk, and compliance; and technology–all of which are delivered seamlessly throughout the world. To find out more, visit www.pwc.com/publicsector. RelevantHealth Booth 805 RelevantHealth is a new startup accelerator based in Rockville, Maryland. Announced in April 2015, RelevantHealth will be cohort-based, offering accepted founders of health tech companies $50,000, a productfocused curriculum, mentorship, dedicated coworking space, and even access to software developers. Applications open in May 2015. Find out more at www.RelevantHealth.md. ResDAC Booth 707 Risk-Readiness Platform helps payers and providers identify unwarranted variation and ideal provider arrangements based on provider practice patterns and population characteristics. RowdMap’s platform comes preloaded with government benchmarks—no IT integration required. Visit www.rowdmap.com RxAnte Booth 708 RxAnte is the leading platform for improving medication use and drug therapy outcomes through predictive analytics and targeted clinical programs. Its innovative analytics platform is transforming how organizations work with healthcare professionals, care management intervention providers, and patients to improve the use of safe and effective prescription medications. Created by subject matter experts in medication adherence, health IT, and advanced analytics, the “RxAnte Platform” is a patent-pending set of solutions that includes predictive and decision analytics, advanced evaluation methods, and an innovative platform for provider engagement. Learn more at www.rxante.com. Self Care Catalysts Inc. Booth 303 ResDAC, a CMS contractor located at the University of Minnesota, provides free assistance to academic, government, and non-profit researchers interested in using Medicare and/or Medicaid data. ResDAC provides information about the strengths, weaknesses, and applications of Medicare and Medicaid data. ResDAC conducts workshops and webinars on using the Medicare (including Part D), Medicaid, and MCBS data. Visit www.resdac.org. Self Care Catalysts is a patient informatics, intelligence, and solutions company. Health Storylines™ and Patient Storylines™ is an innovative tandem solution that personalizes self care and at the same time aggregates de-identified real world, real time data that is transformed into enterprise analytics for pharmaceutical companies, healthcare systems, and payers. Visit www.selfcarecatalysts.com. RowdMap, Inc. Booth 1101 Socrata Booth 400 RowdMap helps payers and providers develop RiskReadiness strategies as they transition from fee-for-service to pay-for-value. RowdMap’s 44 I Health Datapalooza 2015 Socrata helps public sector organizations improve transparency, citizen service, and data-driven decision making. Our user-friendly solutions deliver data to governments trying to reduce costs, to citizens who want to understand how their tax dollars are used, and to civic hackers dedicated to creating new apps and improving services. Vist www.socrata.com. Surescripts Booth 203 The Surescripts network supports the most comprehensive ecosystem of healthcare organizations nationwide. Pharmacies, payers, pharmacy benefit managers, physicians, hospitals, health information exchanges, and health technology firms rely on Surescripts to more easily and securely share health information. Surescripts is guided by the principles of neutrality, transparency, physician and patient choice, open standards, collaboration, and privacy. Surescripts operates the nation’s largest health information network. Visit www.surescripts.com. Tableau Software Booth 700 Tableau empowers healthcare organizations to see and understand the data driving patient outcomes and cost. Tableau features a simple drag-and-drop interface that gives anyone the ability to quickly create and share interactive visualizations of their data. Tableau’s visualizations are easy to interact with from anywhere, including on a mobile device. Visit www.tableau.com. Truven Health Analytics Booth 301 Truven Health Analytics delivers unbiased information, analytic tools, benchmarks, and services to the healthcare industry. Truven Health Analytics combines deep clinical, financial, and healthcare management expertise with innovative technology platforms and information assets to make healthcare better, collaborating with customers to uncover and realize opportunities for improving quality, efficiency, and outcomes. For more, visit www.truvenhealth.com. More info can be found on the app U.S. News & World Report Booth 501 For 25 years, the industry-leading U.S. News & World Report’s Best Hospitals platform has guided patients looking for complex, high acuity care. U.S. News has expanded our health advice over the last decade with data-driven rankings for Children’s Hospitals, Nursing Homes, Health Plans, and Diets. More than 5MM consumers interact with our health rankings, analysis, and content each month, helping them to make informed choices regarding their health. In addition, U.S. News now offers high-level performance assessment and peer benchmarking tools for hospital and healthcare professionals. Visit www.usnews.com. UK Trade & Investment Booth 413 UK Trade & Investment and NHS England have partnered to support a delegation of U.K. companies at 2014 Health Datapalooza. UKTI offers free support and independent advice to foreign companies looking to invest or locate in the U.K. Similarly, UKTI works with U.K. businesses to ensure success in international markets. NHS England works with staff, patients, stakeholders, and the public to improve the health outcomes for people in England. Visit www.gov.uk/government/organisations/uk-tradeinvestment. Verizon Booth 402 Verizon designs, builds, and operates the networks and mobile technologies that help government agencies expand reach, increase agility, and maintain longevity. Powered by investments in security, data centers, 4G LTE, and global IP networking, our portfolio of solutions meets the demands and challenges shaping technology and government operations today. Visit www.verizonenterprise.com/federal. *As of May 8, 2015 Join the conversation at #hdpalooza I 45 HOTEL FLOOR PLAN LOBBY LEVEL Keynote/Plenary 46 I Health Datapalooza 2015 More info can be found on the app EXHIBITION LEVEL App Expo Live Demos Health Datapalooza Exhibit Hall Join the conversation at #hdpalooza I 47 www.healthdataconsortium.org @hdconsortium