FY 2015 Annual Report - The ALS Association Greater Philadelphia
Transcription
FY 2015 Annual Report - The ALS Association Greater Philadelphia
FY 2015 Annual Report February 1, 2014 — January 31, 2015 1 ADVOCACY THANK YOU! The Chapter is proud to join with our ALS families who share their stories and make a huge impact changing both state and federal policies. NJ Assemblyman Troy Singleton took the Ice Bucket Challenge for ALS patient Milt Sierra* State Advocacy Dear Friends, The ALS Ice Bucket Challenge (IBC) raised $115 million for The ALS Association in 2014. It was a phenomenal viral social media event. Three men fighting ALS, Pete Frates, Pat Quinn and Peter Senerchia, and their loved ones galvanized their social networks and inspired people to pour ice on their heads within 24 hours or make a donation to an ALS charity of their choice. Most did both. From the Phillies, to Tina Fey, to our ALS families who took the challenge and prompted a surge in ALS awareness globally, we are forever grateful for the generous outpouring of support. Yes, the IBC was incredible, but you help achieve our mission and work year round by holding events, responding to appeals, advocating, volunteering, attending walks, establishing Funds, and giving your time and effort to strike out ALS. Your contributions allow us to focus on our ALS families. This year we also celebrated our 30 year partnership with the Phillies - what a milestone! We thank you for keeping the ice flowing and continuing to work to strike out ALS in so many ways. The Chapter depends on individuals and sponsors for your help throughout the year and throughout the region we serve. This Annual Report touches on the accomplishments of all of you. The ALS Association, Greater Philadelphia Chapter Regions Served With our sincere thanks, James Pinciotti Executive Director North Central Pennsylvania Ellyn Phillips President YOUR ICE BUCKET DOLLARS AT WORK Southeastern Pennsylvania We are forever grateful for the generous outpouring of support we received from the ALS Ice Bucket Challenge. $ $ 77 raised from 2014 ALS Ice Bucket Challenge MILLION $ South Central Pennsylvania Central and Southern New Jersey 23 MILLION $ 10 $ 3 Research 67% Patient & Community Services 20% Public & Professional Education 9% Fundraising 2% External Processing Fees 2% National Advocacy 2014 Priorities Each May, The ALS Association holds an Advocacy Day and Public Policy conference in Washington, DC. ALS families meet with every legislator representing our service area to educate them about ALS and urge their support of The ALS Association’s Public Policy Priorities. In 2014 they included: An additional $5 million was appropriated to the ALS Research Program at the US Department of Defense. US Military Veterans are 50% more likely to develop ALS than civilians. Overall Funding for Research- More than $600 million in Government funding for ALS research Funding for the National ALS Registry – Secured over $7.8 million in continued funding. The Registry identifies ALS cases across the US in order to improve care and help scientists, government entities and others learn the causes and development, treatment and prevention of ALS. Chapter President Ellyn Phillips (left) and Roger Kirk* and his family in DC. RESEARCH “Advances in the research field have brought us to an exciting and very promising point in our quest to understand ALS. The unprecedented new funding will now allow us to push forward to make the most of those advances.” ALS Association Chief Scientist Lucie Bruijn, PhD, MBA ALSA Chief Scientist Lucie Bruijn, PhD, MBA (left) poses with Bob and Karen Delaney Shideleff and ALSA President and CEO Barbara Newhouse. The Ice Bucket Challenge raised $115 million for The ALS Association’s programs, services and research. “The word gratitude doesn’t do enough to express what we are feeling right now,” ALS President and CEO Barbara Newhouse The 2014 Ice Bucket Challenge has funded more than $77 million for ALS Research, most of which will support on-going studies. That’s 3x more than in the past. In addition, The ALS Association is investing in four cooperative alliances over the next one to three years involving research that has been identified as critical to finding new treatments for ALS: $10 Million - ALS Accelerated Therapeutics (ALS ACT) – a new academic-foundation-industry partnership to accelerate treatments. Researchers from General Electric Healthcare and four academic Northeast ALS Consortium (NEALS) sites will accelerate research, data and resources. All studies will be shared with other ALS researchers. These are being matched from The ALS Finding a Cure Foundation. $2.5 Million - The New York Genome Center - repository for ALS genome sequencing data that increases the number of genetic samples scientists can study $5 Million - The Neuro Collaborative – combines the efforts of three leading California laboratories focused on ALS in order to discover and development new therapies for ALS, which can be delivered to pharmaceutical companies for further development in clinical trials. $1 Million - Project MinE – an international effort to sequence the genomes of at least 15,000 people with ALS. MILLION MILLION $ 2 MILLION Delaware 115 MILLION Strong advocates visited all three states and helped make possible these changes in 2014: Our Chapter, along with the Western PA Chapter, received a $350,000 line item in the State Budget. In New Jersey, income tax returns include a check box to allow taxpayers to make voluntary donations to The ALS Association’s Greater Philadelphia Chapter and Greater New York Chapter. Delaware recognized the 75th anniversary of Lou Gehrig’s retirement. Numbers represent current and anticipated spending. The ALS Association is leading the fight to find treatments and a cure for ALS — through robust research, care services, and public policy programs. There will be synergies between these four initiatives that will increase the quantity and most importantly the value of data openly available to the ALS research community worldwide. Our global research efforts have helped increase the number of scientists working on ALS, advanced new discoveries and treatments, and shed light on the complex genetic and 3 environmental factors involved in ALS. *Deceased PATIENT SERVICES — THE Your Dollars Support the Best Patient Care OF OUR CHAPTER Rick Rittenhouse and his wife Arlene enjoy the Chapter’s trip to Longwood Gardens. The Chapter’s Arthur and Lea Powell ALS Patient Service Programs are provided to ALS families throughout PA, NJ and DE. Money raised by the 2014 Ice Bucket Challenge, individual donors, companies and YOU is supporting ALS Research, Public Policy and Patient Care numbers are based on FY 2015 spending by The ALS Association Greater Philadelphia Chapter Caregivers relax while beadmaking at Caregivers Day. ALS Association Centers The heart of the Chapter. See up to 12 specialists in ONE visit. 1,261 patient visits at different ALS Centers FOUR Visiting Volunteers twenty-four The Howard I. Abrams In–Home Care Program trained volunteers visited patients throughout PA, NJ and DE Patients can stay in their own home, surrounded by loved ones. 17,000 hours of care received by 80 ALS families provides devices to assist with communication to help with daily living. 195 40 Recreation Programs The Scott A Mackler MD, PhD Assistive Technology Program hundreds Tim Heiser and his family celebrate at the Chapter Holiday Party. of ALS families went to Longwood Gardens, Morey’s Piers, the Holiday Party and Caregivers Day Chuck Morris meets with Leo McCluskey, MD, MBE Medical Director, The ALS Association Center at the Penn Comprehensive Neuroscience Center. 1,162 Resource Groups & Seminars Share stories and meet others. The Phillies have partnered with the Chapter since 1984. This is the original plaque from the Center’s 1999 opening at Pennsylvania Hospital. 4 The Hershey Clinic Team is well represented at the Walk to Defeat ALS®. Here Dr. Zach Simmons takes a break with Gordie Miller. 4 patient and family attendees at a grand total of 114 support groups covering our whole region in-service programs managing ALS for healthcare teleconferences providers 29 patients seen by our Specialist AT Devices delivered The Marjorie Shimer Equipment Loan Program 304 Respite Care & Accessibility Program 320 47 wheelchairs, shower chairs and other medical equipment loans to patients hours of care for patients ramps and stair glides provided The Mike Kilpatric ALS Transportation Program 127 patients and caregivers transported 5 LEGACY SOCIETY NAMED FUNDS Named Funds create a lasting tribute for loved ones with ALS. Each has a page on the Chapter’s website and is included on a recognition plaque in the Chapter’s headquarters in Ambler, PA and The ALS Center at the Hershey Medical Center for funds supporting that Center. Named Funds are established with a minimum commitment of $25,000. (l-r) Donna Book and Legacy Society Member Deb Graham take a lap at the Hershey Walk to Defeat ALS® presented by Cleveland Brothers. The Legacy Society of The ALS Association recognizes individuals who have included the Association in their long-term plans through a bequest, life-income gift, or other planned gift arrangement. Among the Greater Philadelphia Chapter’s most valued supporters, members of The Legacy Society have determined that their legacy will be one of hope – hope that a cure for ALS will be found and that those living with the disease will be helped and supported during their lifetime with vital patient care services. Members: Jeffrey L. Abrams Rhoda Albom * Daniel Ardente Anna Arnold * Robert Arrow * Ron and Carol Banes Evelyn Baratta * Margaret A. Barry Jay F. Bolick Lisa W. Bolick * Doris M. Bomgardner Joan S. Borowsky Ronald A. Brown Beverly Burkhart * Richard T. Byrnes * Jayne M. Cawthern Charles Cherkes William Cherkes * Charlene B. Costa Pat Costello Hilda J. Daily * Betty K. Davis Therese Decker Donald Dellinger * Janice Diamond-Wolf Mildred Diamond James B. Dietrich * Bonedia L. Errickson Mary Lou Fenn * John J. Ferry * John H. Gauger Allen & Eleene Grabell Deborah Graham Robert L. Grimes Emma Hohlfeld * Dean Hollander * Mildred R. Hubbs * Judith Jaffee Robert D. Kale Richard T. Kanter * David Kasoff Elkan M. Katz * Fern Kaufman Thomas V. Kelsey E. Ann Klein * Nancy A. Lewis E. Marie Lilly * G. Mary Lincoln Genevieve M. Loos * Kenneth Mallin * Cheryl Mann Thomas E. Matyjasik Elizabeth Maurer June Cason Mayer * Peter McGuire * Thomas J. McLaughlin Maureen A. McPeak George R. Moyer Rhoda Mull Evelyn B. Nasielski Thomas W. Nelson * Benjamin S. Ohrenstein Bonnie & Stuart Pastman Ellyn C. Phillips James V. Pinciotti Sanford Pomerantz Arthur L. Powell * Linda P. Reitz Eleanor C. Repp * Carole Resides * David M. Ricci Mary C. Riley * Helen Rimerman * Jennifer T. Rimerman Gilbert A. Ringer Thomas S. Robertson * Patricia A. Rogers Joseph Salamone * Thomas Scamuffa, Sr. Wendy Schermer Lisa A. Schwab Valarie J. Schwarz Dale J. Shimer John Shultz, Jr. Jean Sidoroff Nancy E. Small Evelyn Spivack Brenda J. Stuckey * Kathryn M. Thomas Roy Uhlman * Judith Uhlman-Nardelli Andrew Urquhart Sylvain Van Gobes * Tracy Varano-Garrison Nancy J. Venner Willard Wheaton, Jr. * Barry Wolf * deceased The Ashley Fund The James E. Beck Memorial Fund The Dennis Bireley Fund The Lisa Bolick Fund The Paul and Harriet Campbell Fund for Patient Care The Sheldon Cardonick Fund for Research The M. Louis Chiste Fund The Dad Fund The Therese Decker Fund The James B. Dietrich Fund The Ken Ellis Fund The Linda Ersner Fund for ALS Research The Bruce “Turk” Gabel Memorial Fund The Sang Bok Graham Fund The Thomas L. Hanson Memorial Fund The Thor W. Johnson Memorial Fund The Chris Katucki Fund The Mike Kilpatric Fund The Jack Edward Kissinger Fund The Phoebe Leboy Fund The Sally McLaughlin Fund The Janet Michael Fund The Rhoda J. Mull, Esquire Fund The Nancy K. Noone Fund The Samuel Pennise Memorial Fund The Alan L. Phillips Fund The Joanne E. Pugliese Memorial Fund The Carol R. Resides Fund The Charles (Chick) Rogers Memorial Fund The Rothshow Memorial Fund The Kathleen “Casey” Santye Memorial Fund The Charles W. Schwarz Fund The Marjorie Shimer Fund The Donna L. Shultz Fund for Patient Care The Jack Seese Memorial Fund The Sollie Small Fund The Richard G. Smolev Fund Team Scamuffa Fund The Anne Van Gobes Memorial Fund The William F. Weart/William Penn Charter School Fund The Ronald and Sherry Wenger Fund Funds established in Fiscal Year 2015: Keep the Ice Flowing! The Community of Hope The Community of Hope is an online community of tribute funds created by ALS advocates who want to establish a lasting legacy in honor or memory of someone special. Tribute fund web pages are created for each one. • 72 total • Three newly created this year. • Total raised through COH in FY15 = $6,381.60 • Total raised to date = $117,386 6 Workplace Giving We thank all those who give to the Chapter at their workplace through United Way or Community Health Charities (CHC). In 2014, $141,281 was raised this way! The Carol R. Resides Fund In appreciation for the outstanding care and support provided by The ALS Association, and the critical need to further research, Carol established this fund to equally support Research and the ALS Patient Services Program. The Janet Michael Fund The Charles (Chick) Rogers Memorial Fund The fund was This fund was established in 2014 established in 2014 by in loving memory by Patricia, Susan, James her husband, George. and John Rogers in In appreciation for loving memory of the care and services Charles (Chick) Rogers. provided by The The fund is to further Greater Philadelphia ALS research. Chapter, this fund supports the Howard I. Abrams In-Home Care Program. The Charles W. Schwartz Fund The Richard G. Smolev Fund Established in 2014 by Valarie Schwarz in loving memory of her father to support the general mission of The ALS Association Greater Philadelphia Chapter. Established in 2014 by Nancy Alessi and their sons, Michael and David Smolev, to provide care and support services to patient families living with the disease. 7 2014 WALK TO DEFEAT ALS® The Walk to Defeat ALS® is The ALS Association’s largest annual event. Choose a Walk near you and then rally your friends, family and co-workers to challenge ALS. www.gpcwalktodefeatALS.org Yo u r Wal ks Rai s e d $ 1 , 8 3 4 , 059 Matt Bellina, his wife Caitlin and their son Kip pose with Ryan Howard and Chase Utley of the Phillies. Sandy Piersol, Chair, Chapter Board of Overseers; Nancy Giles of the Phillies; Marcy Cardonick, Chapter Board Member; and Chris Martin, Chapter Board of Trustees at the 2014 Phestival. Dr. Glen Mackin and ALS patient Donna Katcher at the Lehigh Valley Walk to Defeat ALS®. The starting line up in Ocean City, NJ. Lakewood Walk to Defeat ALS® $117,302 Bloomsburg, Jorge’s Walk to Defeat ALS® $54,772 Hershey Walk to Defeat ALS® presented by Cleveland Brothers $278,663 The Phillies are our year-round partner in striking out ALS. In 2014 The Greater Philadelphia Chapter celebrated its 30-year partnership with the Philadelphia Phillies and this incredible milestone was celebrated at the 2014 Annual Luncheon. Phillies outfielder Cody Asche was a featured speaker. As the banner says, the team has raised over $15.2 million for the ALS cause between 1984 and 2014. The 2014 annual Phillies Phestival raised a record $904,732. 2014 also marked the 75th anniversary of Lou Gehrig’s famous farewell speech at Yankee Stadium. Many players and management also challenged ALS by taking the Ice Bucket Challenge. Rehoboth Beach Walk to Defeat ALS® $81,635 Ocean City Board...Walk to Defeat ALS® presented by ShopRite and their Customers and Certainteed $328,384 Lehigh Valley Walk to Defeat ALS® $237,502 Greater Philadelphia Walk to Defeat ALS® presented by BAYADA Home Health Care, Pride Mobility Products Corp., Quantum Rehab and ACME Supermarkets and Pharmacies $735,801 8 Chapter Executive Director Jim Pinciotti (right) and Mark Baiada of BAYADA Home Health Services raise their hands in triumph as the Greater Philadelphia Walk sets a fundraising record. 9 EVENTS February 1, 2014 — January 31, 2015: ALS Craft & Vendor Show Pat fight ALS Doll Klinger Memorial Gospel Sing Chilly Chili for Paula Friends Against ALS Golf Tournament Christmas Shoppe to Defeat ALS Lancaster Bike In Community Days 2014 at the Bon-Ton Community Yard Sale Monzo Madness Corazon - Photo Marquelia Post World Series Party CPK FUNdraiser Ray Matthews Memorial ALS Bike Tour Crossfit for Casey Team Scamuffa ALS Benefit Dan Schantz Greenhouse Fundraiser 2014 HR Derby to Defeat ALS Dance to Defeat ALS 4 on 4 for a Cure Dancing to Keep it Strong A Night for Roman Zumbathon for ALS ALS Awareness Night at the Flyers Difebo’s Dine and Donate ALS Awareness Night at the Phillies Donna’s Dugout Pitch to the Katcher ALS Awareness Night with the Softball Event Lakewood BlueClaws Donut Dash Brielle ALS Awareness Night with the Lehigh Duffers Tavern fundraiser Valley IronPigs Eat to Defeat ALS - Zoe’s Kitchen ALS Benefit at Oregon Dairy Fall Fling Festival - Punkin Chunkin ALS Benefit Polka Dance Ferguson Enterprises Annual Trade ALS Charity Crop Show ALS Express Fighting the Fight ALS Magic Show Friends Against ALS Beef and Beer ALS Wine Dinner Halligan’s ALS Fundraiser AmerisourceBergen Greater Hershey Walk to Defeat ALS® presented Philadelphia Walk to Defeat ALS® by Cleveland Brothers presented by BAYADA Home Health Care, Pride Mobility Product Hollowed Reunion Gig for Corp., Quantum Rehab and ACME ALS & Lung Cancer Supermarkets and Pharmacies Hot Chocolate Annual Luncheon Houlihan’s ALS Fundraiser Annual Pig Roast to Benefit ALS Jared’s Black Belt Promise to ALS AristaCare at Meadow Springs Jimbo Classic - McShea Family Fundraiser Golf Outing Armstrong Golf Joe Schwartz ‘83 Memorial Bartone Golf Outing/Dinner Dance 3k Walk/Run BAYADA Food Truck Fundraiser Jump into Summer for ALS Beef and Beer and Autograph signing Ken Dawson Memorial Golf Outing Beef and Beer Benefit for Shelby Rowe KV Fun Run and Walk Billy Lake Beef-n-Beer Lakewood BlueClaws Celebrity Waiter Night Billy Lake Memorial Basketball Marathon Lakewood Walk to Defeat ALS® Bloomsburg Jorge’s ® Walk to Defeat ALS Lansdale Catholic Boys Basketball is Kirkin’It! Boscov’s Friends Helping Friends Legs 4 Greg Walk for Greg Telthorster Braveheart Highland Pub Lehigh Valley Walk to Defeat ALS® Burlington Charity Day LoL Dunks ALS Camden Riversharks Night Louie’s Dine Out week Car wash & bake sale to help 10 Lou’s Grand Slam 5K Run/walk Lower Gwynedd Elementary fundraiser Mackler 5K Macungie Vendor bingo Mazur Cup Michael Bartone Scrum for Six Rugby Move & Groove-a-thon - YMCA Night of Hope Ocean CityBoard...Walk to Defeat ALS® presented by ShopRite and Their Customers and Certainteed Odell Studner Golf Outing Pals of Jimmy Duffy Annual Outing Patient and Family Trip to Longwood Gardens Phillies Phestival Post New Year’s Benefit Reading Phillies Auction Rehoboth Beach Walk to Defeat ALS® Research Update Rockhill Gives Back! Community Ice Bucket Challenge Roey’s Paintbox Party Roger Kirk ALS Association Golf Outing hosted by Greg Gross Ryan’s Pub Golf Outing RYO/PLTS 2014 Golf Outing Sam Adams Golf Outing Shippensburg University Men’s Soccer team ALS night Shop for a Cause Splash Zone Waterpark Ice Bucket Challenge Step Up To the Plate Sweet Taco/Walk to Defeat ALS® Swing for a Cure for Lou Gehrig’s Disease Tailgate Party with Brian Dawkins The Wild Half - half marathon Towers Club Golf Outing/Supporting ALS UHS ALS Fundraiser Valour Pro Wrestling Battles ALS WBS Penguins ALS Awareness Night Wilson High School’s “Tropical Boogie” Events provide an outstanding source of revenue for the Chapter. Many are Community Partner events which depend on community members to help spread the word about ALS. Keep the Ice Flowing! Jeff Loeper, who is living with ALS, and his wife Jennie and the fish at Hot Chocolate at Adventure Aquarium. The crew from Hot Hot Hot Entertainment donates their time and talent to the Holiday Party, Greater Philadelphia Walk to Defeat ALS® and Hot Chocolate. In honor of the 75th anniversary of Lou Gehrig’s farewell speech at Yankee Stadium, Board Chair of Overseers Sandy Piersol and many Chapter supporters took Lou Bearig out to a Phillies Game. Gregg Gross and Roger Kirk* meet at the annual Roger Kirk ALS Golf Outing hosted by Gregg Gross. Share your event photos on social media. Follow us @ALSPhiladelphia *Deceased 11 FISCAL YEAR 2015 GIFTS GIFTS We are GRATEFUL FOR THE GENEROSITY of the following individuals and organizations, each of whom made a gift to The ALS Association Greater Philadelphia Chapter during 2/1/14-1/31/15. With thanks to the thousands who have made contributions of less than $500, the constraints of printing did not allow us to list these important donors individually. Please accept our apologies if we have omitted your gift or erroneously reported it. Feel free to call our office at 215-643-5434 with questions. For the purposes of this listing, all gifts to the Phillies Phestival through Phillies Charities, Inc., as well as individual gifts made through the United Way Donor Option programs, and Community Health Charities are included. When you donate, you help ALS families receive: $25 Personal Pager $50 2 hours of in-home care $150 Lightweight wheelchair $200 Rapid Access Communication System $225 Van transportation to/ from our clinic $350 One visit to our ALS Clinic $600 iPad for communication $3,000 Lightwriter communication device Levels of Giving: Hero...$300,000 and above Strength...$10,000 - $14,999 Inspiration...$100,000 - $299,999 Determination...$5,000 - $9,999 Hope...$25,000 - $99,999 Resilience...$1,000 - $4,999 Courage...$15,000 - $24,999 Encouragement...$500 - $999 In Kind Donations 95.7 BEN-FM Albert Hakim, LaserWave ARAMARK Asher’s Chocolates Barefoot Wine and Bubbly Charles Jacquin et Cie., Inc. Comcast SportsNet Conlin’s Digital Print and Copy Center Cumulus-Allentown-Bethlehem Easton Garman Sign & Decal Co. Guylians Chocolates Harvey Mackler GEMPIRE/Flora 12 Promotions Hot Hot Hot Entertainment Hunt Auctions Liberty Printing Majestic Athletic Matthew Lee Philadelphia Distilling ShopRite The Pearl Group at CRW Graphics The Phillies Tom McGivney, A,B + C Turkey Hill Dairy UTZ Zieger & Sons, Inc. Karolina Fraczkowska and Melissa Janssen congratulate each other at the starting line of the Chapter’s ALS Express Bike Ride. Josiah W. and Bessie Hero $300,000 & Above H. Kline Foundation Phillies Charities, Inc. Powell Family Foundation Inspiration $100,000 to $299,999 Estate of James B. Dietrich Julius and Ray Charlestein Foundation,Inc. Mr. and Mrs. James Koster Pennsylvania Department of Health The Donald B. and Dorothy L. Stabler Foundation Hope $25,000 to $99,999 Mr. Jeffrey L. Abrams and Ms. Margaret A. Barry Anonymous Mr. and Mrs. Jordan Berman Citizens Bank Farber Family Foundation Hess Foundation, Inc. Independence Blue Cross Joseph Alexander Foundation, Inc. Kessler, Topaz, Meltzer & Check, LLP Michael Bartone Memorial Foundation Mr. George Michael Mrs. Patricia A. Rogers Philadelphia Phillies Ms. Ellyn C. Phillips Pride Mobility Products Corp. Ms. Valarie J. Schwarz The Charter Foundation The Ron Krancer Family Village Supermarket, Inc. (ShopRite) Washington Township High School Activities Fund Mr. and Mrs. Barry Wolf Courage $15,000 to $24,999 Mrs. Nancy Alessi Anonymous BAYADA Home Health Care Billy Lake ALS Memorial Foundation Mr. and Mrs. Brian L. Buchert Estate of John F. Blewitt Mr. and Mrs. Jack Farber Kasco Construction Co., Inc. Determination $5,000 to $9,999 Mr. Gerald R. Shreiber Inc. Sports Complex Acme Markets Mr. and Mrs. James* Amerisource Bergen Special Services R. Koller District Services Corp Macy’s Sunbury Social Club Anonymous Samuel Adams Ballard Spahr, LLP TD Charitable Pennsylvania Mrs. Karen Bishop Foundation Brewery Team Scamuffa Fund Blueclaws Charities Mr. and Mrs. Richard Boeing Employees The Joseph F. S. Schiffrin Umosella Community Fund Mr. Frederick P. Slack Ms. Dorothy R. Boylan Family Foundation Mr. and Mrs. Al Mr. John G. Chou The McLeod Family Slipakoff Chubb Federal Gifting IHS Fund Tania and Brian J. Insurance Company The New York Higgins Charitable Colligas Family Community Trust Trust Markets, LP The Pearl Group at The Odell Studner (ShopRite) CRW Graphics Foundation Inc. Colonial Oaks The Philadelphia 76ers, LP Strength Foundation $10,000 to $14,999 Comcast Sports The Scholler Foundation Abrams and Ingersoll, Group Conservest Capital Thriftway/Shop N Bag LLP UFCW Local 1776 Advisors, Inc. Aramark Barclays Bank Cravath, Swaine & UHS of Delaware, Inc. Universal Supply Moore LLP Delaware Mr. and Mrs. Bruce A. Day & Zimmermann Company, Inc. Vanguard Charitable Inc. Berkowitz Mrs. Susan Deangelo Endowment Berwick Offray L.L.C. Program Mr. Scott DeWire Biogen Mrs. Beverly Burkhart Doylestown Pediatric VF Services, Inc. Dr. Sherry Wenger CertainTeed Dentistry, P.C. Resilience ELAP Services, LLC Corporation Cleveland Brothers Ewing Cole, Inc. $1,000 to $4,999 Equipment Co., Inc. Fraternal Order of Professor and Mrs. Mr. and Mrs. Steven Orioles Andrew B. Abel Nest #22-SGOC Collis Accessible Vans And Colonial Middle GAF Materials Mobility, LLC Corporation School Ace Restaurant Group Genesis HealthCare, Mrs. Mary Jane Agnew Cozen O’Connor LLC CSS Industries, Inc. Air Products Ms. Anne B. Davidson Home Helpers Foundation Estate of Sylvain Van Ipg - Interpublic Mr. & Mrs.* Ira Albom Group Gobes Mr. and Mrs. Anwar Ali Genuardi’s Family J & J Snack Foods Mr. Christopher Mr. and Mrs. Eric T. Alwine Foundation Johnson Mr. John Hummer American Ramp Mrs. Christine V. Mr. and Mrs. Thomas Systems, Inc. E. Johnson Kanter AmeriHealth Casualty Mr. and Mrs. Geoffrey Mr. Richard J. Katucki Mr. Tony Anderson Mr. & Mrs. Roger* Kirk Dr. Barbara Apostolou Kanter Mrs. Heather A. Mr. Louis J. Appell Jr. Mr. David Kasoff Kistler-Tiffany Benefits Kissinger Mr. and Mrs. Walt L.F. Driscoll Company, Mr. and Mrs. Daniel J. Applin Quinn LLC Mr. and Mrs. Michael Mr. Alan M. Markowitz McLean Arning Merck Employee Contributionship Mr. and Mrs. Michael Mr. and Mrs. David P. B. Aronson Giving Campaign Newbury Street Montgomery Mr. and Mrs. Juan Mr. and Mrs. Howard Ayala Capital, LP L. Morgan Newco Riders, LLC Ms. Suzanne Bachur Neshaminy Electrical Watkins Parx Casino Penn Comprehensive Contractors, Inc. Ms. Regina Baime Neuroscience NRG Home Solar Bank Of America Panzano and Partners, Foundation Center Schooner Investment LLC Ms. Zaida Bare Pediatric Services of Mr. Dominick A. Group, LLC America, Inc. Mr. Dale J. Shimer Bartone PNC Foundation Mr. James H. Simons BDO USA, LLP The Ken Dawson Premier Dental Mrs. Joyce Beaver Memorial Golf Products Company Belfint, Lyons & Outing Committee Rerum Novarum Schuman, CPAs Mr. and Mrs. David Charitable Trust Dr. David R. Bell Mr. and Mrs. John Belvedere Inn Inc. Twing Beneficial Bank United Seating & Russo Shermans Dale Stanley & Marion Mobility LLC Community Bergman Charitable Fire Co., Inc. Fund Berky Benevolent Foundation Berlin Township Police Association Mr. Ronald T. Biava Mr. Lee H. Bilheimer and Mrs. Judy Parsons Mr. and Mrs. Bradley A. Bingaman Ms. Emily Bittenbender Blaise Alexander Ephrata, Inc. Mr. James Blanshine Blue Rock Construction Ms. Bonnie Bowen Mr. David Bowers Mr. W.J. Boyle Bradford White Corporation Mr. and Mrs. Eric T. Bradlow Brakebush Brothers Mr. and Mrs. Christopher Brendle Mr. and Mrs. Michael Brennan Brinker Capital Bristol-Myers Squibb Company Mrs. Susan Brooks Ms. Barbara Brungess Mr. Cody Bryson Bucks County Anglers Club Ms. Susan Bulger Mr. and Mrs. David Bunevich Mr. and Mrs. Terrence Burke Mr. and Mrs. Dennis Burns Business Clubs of America Mr. Curt Butler Cabot Landscaping LLC Cannoneers Sportsmens Club Inc Capital Health System Mrs. Marcy Cardonick Mr. and Mrs. Robert N. Carlson Carmel Presbyterian Church Board of Deacons Carr & Duff Inc. Mr. and Mrs. Michael Caulfield Cedar Grove Elementary School Centre Pathology Assoc PC Certified Public Accountants Mrs. Kirsten A. Cetrone Chartwell Investment Partners Cheapsneaks.com Mr. Robert Chen Chester County Conference and Visitors Bureau Chester Downs and Marina, LLC Churchville Elementary School Ms. Elizabeth C. Cirelli City Of Wilmington Delaware Clark Associates, Inc. Clemens Food Group, LLC Mr. and Mrs. Philip Clemens Mr. and Mrs. Jay Cleveland, Jr. CNI Sales, Inc. Mr. W. Thomas Coder,Jr. Mr. and Mrs. Dale Coleman Mr. Patrick G. Colgan Mr. and Mrs. Peter V. Commander Communications Test Design, Inc. Convergent Solutions Group Mr. Denis Corcoran Ms. Gail Costello Mrs. Emily F. Cox Mr. and Mrs. William Creighton Mr. and Mrs. Joel Cutler Dairy Queen Of Quakertown Alysia Deaven VMD Mr. and Mrs. Keith Deaven Estate of Joan Declement Deloitte & Touche LLP Mrs. Jonna Delp Mr. Matt Desoto Mrs. Janice Diamond- Wolf Mr. and Mrs. Robert S. Dickey Ms. Karen Dieterle Dirt Works, Inc. Mr. and Mrs. John C. Dodds Mr. and Mrs. William Dolan Dolente Foundation Ms. Deirdre S. Dransfield Mr. Tim J. Dransfield Mr. Joseph Dudas Dynamic Rehab Solutions, LLC Eagle Youth Partnership Eastern Lancaster County School District Mr. and Mrs. Samuel M. Eisenstat Mr. and Mrs. Yaron Eitan Mr. and Mrs. Steve Elder Mr. Thomas Elkinton Mr. and Mrs. Adam Ellis Employees of Premier Dental Products Mr. and Mrs. Edward Enoch Enterprise Holdings Foundation Mr. and Mrs. Donald T. Epstein Equus Capital Partners, Ltd. Erlbaum Family Foundation Dr. Arthur R. Ersner Mrs. Christine Erwin EventBrite Mrs. Linda Ewald Fabietti, Hale, Hammerstedt & Powers, Pa Fairchild Semiconductors Mrs. Jessica Fake Mr. and Mrs. John O. Family Mr. Brad Feld Mr. and Mrs. James Ferrario Ms. Audrey B. Fingerhood FirstEnergy Foundation Mr. Robert E. Fish Mr. Philip W. J. Fisher Mr. and Mrs. Douglas Clark Ms. Irene M. Flannery Mr. and Mrs. James M. Foulke Fox Subacute at Clara Burke Mrs. Margaret Francis Frankel Enterprises French Creek Golf Club Mrs. Darlene Frey Mr. and Mrs. William J. Frezel Friends Against ALS Friends Of Dustin J. Myers Frost Inc. Mr. Joshua Funk Dr. and Mrs. Joseph A. Gascho Geisinger Health Foundation Mr. and Mrs. Larry Genuardi Get the Funk Off! Mrs. Betty Gianforte Mr. and Mrs. Greg Gianforte Mr. Ryan Gibian Ms. Sharon Gibison Mr. Craig Gielarowski Mr. and Mrs. Scott Glassford Dr. Robert I. Handler and Mrs. Judith B. Golden Mr. Andy A. Goldman Grainger Matching Charitable Gifts Program Greater Wildwood Elks Lodge #1896 Mr. and Mrs. Duane R. Greenly Dr. Susan A. Gregory Mr. and Mrs. Paul Gress Mr. and Mrs. Alan J. Griffith *Deceased 13 FISCAL YEAR 2015 GIFTS FISCAL YEAR 2015 GIFTS Griswold Special Care Drs. Kent and Lori Griswold Mr. Greg Gross and Ms.Konnie Crawford Mr. and Mrs. Tim Guttman Mr. and Mrs. Joel B. Haight Mr. Matt Phillips and Ms. Melissa Hanczyc Dr. Gordon C. Handte Mrs. Sandra H. Hanson Mr. and Mrs. David M. Harding Mr. and Mrs. Alan Harlam Mrs. Margaret Harner Harold Wetterberg Foundation The Brown Brothers Harriman & Co Harrisburg Area YMCA Haverford College Department of Athletics Haydon Bolts, Inc. Mr. and Mrs. Pierre Hayward Hazleton Owls Rod & Gun Club Dr. Joy Heising Henkels & McCoy, Inc. Henry Schein Inc. Mr. Wallace D. Hess Mrs. Leanne Heston Highpoint Dental Medicine, P.C. Hillcrest Elementary Mr. and Mrs. Thomas H. Hipp Mr. James Hirschmann Mrs. Julie Hirshey Mr. and Mrs. Pat Holt Mr. Chris Honigman Stephen Horniak Mr. Fred Horrocks Hot Hot Hot Entertainment Mr. James Hovey Hovus, Inc. Mr. and Mrs. Graeme K. Howard III Mr. Ben Huh Hulmeville Ent. Inc. Mrs. Anna Hutchinson IBEW Local Union 98 Mr. and Mrs. Michael R. Imbriani Independent Retailer Group Ms. Laura Ingraham Intex Millwork Solutions, LLC Brian Jackson Ms. Hara Jacobs Mr. and Mrs. Philip Jacobsen Johnson & Johnson Matching Gifts Program Mr. and Mrs. David C. Johnson Mrs. Janelle L. Johnson Mr. and Mrs. Lance E. Johnson 14 Joseph Definis Inc. JP Stevens Choir and Orchestra Parents Association JP Morgan Chase Foundation Matching Gift & Volunteer Program Mr. and Mrs. Craig Kackenmeister Mr. Lawrence Kades Mr. and Mrs. James B. Kahn Mr. and Mrs. John R. Kaiser Mr. Gerald F. Kane Mrs. Michele Kane Ms. Amy A. Kasznel Mr. and Mrs. Paul Katcher Ms. Jacqueline Katz Mr. Steven M. Katz Mr. and Mrs. Frank J. Kelly Mr. Robert Kernish Mr. Thomas Ketter Mrs. Christine K. Kiernan Mr. and Mrs. Peter Kiernan Mrs. Maryann Kilpatric Mr. and Mrs. William Kirchhoff Mr. and Mrs. Tom Kirk Mr. and Mrs. Scott Kirsch Kiwanis Club of New Holland Klein Tow Family Mr. and Mrs. Justin Klein Mr. Robert C. Kline Ms. Susan Knight Knights Of Columbus Council 7515 Mr. and Mrs. James Knudson Mr. and Mrs. Robert A. Korn KPMG, LLP Mr. and Mrs. Lawrence J. Kramer Mr. and Mrs. Edmund A. Krause Jr. Ms. Lina Kristina Mrs. Megan Kutch Mr. and Mrs. George Lancos Lansdale Chrysler Dodge Jeep Ram Ms. Anne Leader Mr. James A. Lee Lehigh Valley Health Network Lehigh Valley IronPigs Heidi Leister-Tebbe Mr. and Mrs. Joseph Levin Mr. Jeremy Levine and Ms. Yael Taqqu Mr. Stephen Lewis Lexus of Chester Springs Linden Foundation Prof. John D. Little Lockheed Martin Bagel & Pretzel Club Professor and Mrs. Leonard M. 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Tyler Dr. Peter Ubel and Ms. Paula Greeno UGI Utilities, Inc. Ms. Janet L. Unger United Food & Commercial Workers Union Local #27 United Steelworkers District 10 Upper Allen Baseball Association Mr. and Mrs. Raymond H. Van Wagener Jr. Thank you for inspiring all of us. We shall miss you deeply. We remember those who lost their lives to ALS 2/1/14 - 1/31/15 Mr. and Mrs. Richard Vanduzer Ms. Tracy Varano- Garrison Mr. Leonard J. Victor Mr. and Mrs. Chad Vilotti Vineyard Vines Mr. and Mrs. Joseph P. Viviano Jr. Catherine H. Voit Esq. Mr. Timothy Voit Mr. and Mrs. Rick Von Czoernig Mrs. Lisa Walker Mr. Randy Walker Mrs. Kathleen M. Wallen Mr. James Walsh Mr. and Mrs. Brian P. Walsh Mr. and Mrs. Brad Waxman Mrs. Lori Weaver Ms. Michelle Weaver Mr. and Mrs. Robert D. Webber Weldon Solutions Mr. Mack E. Weller Mr. Spencer Wells Mr. and Mrs. Donald S. Wert White Rose Food Mrs. Patricia J. White Mr. Ryan White Whole Foods Market Willig, Williams & Davidson Mr. and Mrs. Gary Willoughby Wilson Area School District Mr. Fred Wilson Mrs. Susan Wilson Mr. and Mrs. Joseph F. Winning Jr. Mrs. Glenda L. Winters Mr. and Mrs. Allan Witman WPHT Radio Mr. Minturn Tatum Wright III Mr. Albert V. R. Wulff III Mr. and Mrs. John L. Yacina Mr. Doug Yearley Yellow Breeches Middle School Mr. Jack Yoast Young, Conaway, Stargatt & Taylor, LLP Youth In Sports Mr. Jonathan Sobel and Ms. Irina Yuen Mrs. Connie Yurczyk Mr. Paul Zaentz Mrs. Julie Zarebicki Zarwin, Baum, DeVito, Kaplan, Schaer & Toddy PC I might have had a tough break; but I have an awful lot to live for. Lou Gehrig Margaret Alford Larry Alwine Earl Artle Scott Baker Bernadette Balf Richard Barr William Barton Paula Barvin LouAnn Bates Richer Batista Frederick Bauer Ruby Becker Joshua Beitz Raymond Berry Joseph Berry Victor Bini Michael Bloom Eleanor Boccella Jeanette Boguslaw Gwendolyn Borgese Irene Borick Michael Bouch Barbara Brand Constance Brocavich Paul Brown Jack Brown Sheila Bukey Carrie Burk Beverly Burkhart Frank Camuso Shirley Cardoni Lura Catlin Anne Celotto Tom Cetrone Phyllis Chedester Donald Cirillo Susan Conover Diane Contino Sarah Coudriet Alan Croasdale Seymour Cutler George Dargay Peter Davenport John Deal Joseph Dempster Mary Deppen Joyce Derstine Robert Dick Craig Dickerson Barry Diehl James Dietrich Charles Dietzler Joseph DiSalvia Joseph Donovan John Duman Doris Durner Murray Earle Kim Egolf-Fox Todd Emig Brian Faix Sidney Faulkner Spero Ferentinos Dolores Ferrante Richard Forcellati Edith Ford Elizabeth Foster Grant Frederick Thomas Fulmer Alex Galante Sharon Gallo Carol Gartland Kathryn Giardina Martha Gibbs Bernard Gidaro Roman Gielarowski Lesley Gladney Jean Graham Francis Graham Nancy Greene Bernard Grundy Marcus Hackett Thomas Haeberle JoAnn Hall Gerhard Hammer Helenann Hatfield Mary Heaps Charles Heitzman Edith Hencke Matthew Hess Pauline Hinson Patricia Hooks Ella May Hoover David Huey Marcia Humer Kevin Hunt David Ihde Kathleen Jablonski Roberta Jones Michael Kessler Jeannette Kilcourse John Kinyon Barbara Kling William Klopp Lelarathne Konara James Krieger John Kuderka Joan Kunkel Miguel Lacasa Beverly Lacey Thomas Laspata Mildred Lefever John Leuzzi Valerie Levinson Kramer Robert Lewis Daniel Luongo Thomas Macadams Jack Makely Bruce Malenbaum Ruth Mankin George Margetto Darrell Martin Dolores Martin Van Masciantonio Diane Matarazzo Helen Mayer Brian McCall Rose Mary McCarthy Irma McCool Charles McFadden John McNally Thomas McTamany Phyliss Mengle Dan Mertz David Meyers Darin Miller Dolerene Miller Sharon Miller Barbara Morgan Gladys Scott Jeffrey Seidel Marion Shirkey Paul Shymansky Gerard Small Harold Smith Scott Snyder Paul Snyder Matthew Muhammad Diana Song Robert Musser Kenneth Sparks Maryellen Nagle Eileen Spence Mary Narehood George Steward David Neaves Paul Stiles Pauline Neeser Regina Strain Kurt Nenstiel Terry Strawbridge John Nichols Catherine Szap Martin Nickel Gregory Telthorster Betty Noble Beverly Thill Cynthia Nolan Leonard Tishgart Meryle O’Shields Carl Tonini Jo Anne Outten Robert Torrance John Pace Samuel Torsky Albert Panaci CharlesTourtual Lynne Parker Joyce Turick Creighton Frederick Van Stan Lawrence Paul Alice VanBlargen Daniel Pellegrino Sharon Vanderslice Thomas Phelan Julia Vazquez Thomas Picarelli John Vendetti Mary Pikul Thomas Voytek Charles Polk Mary Wakeham Kenneth Prager Mary Wallace Usha Ramnit Edward Wawzjnak Laura Randar Lucy Wax Charles Rash Bruce Wenger Robert Rasmussen Stephen West Ronald Renshaw Alan Wetzel Carol Resides Patricia White Stewart Resnick Clark Whiteleather Luis Reyes Brian Whitney William Rice Linda Wilhelm Edna Richards Edward Williams Marvin Richter David Williams William Riggs Beverly Williard Frances Rocks Wanda Wilson Robert Roddy Linda Wilson Christine Roski Barbara Wiseman Pamela Ross Benjamin Woodland Steven Ryno Mary Jane Woods Peg Sabol Robert Wright James Sagnelli Garry Zeigler Sandra Scarduzio Roy Schaefer Perry Schwartz Stephen Schwille Patricia Sciarrino Daniel Scimeca Joann Scofield 17 STATEMENTS OF FINANCIAL POSITION STATEMENTS OF FINANCIAL POSITION January 31, 2015 and 2014 January 31, 2015 and 2014 2014 2015 ASSETS Temporarily Restricted Unrestricted Permanently Restricted Total Temporarily Restricted Unrestricted Current Assets Cash and Cash Equivalents Pledges Receivable Grant Receivable $ 3,173,801 $ 482,401 64,086 110,765 - 185,000 Other Receivables 72,925 - Prepaid Expenses 40,630 - TOTAL CURRENT ASSETS $ - $ 1,554,951 $ 254,849 174,851 89,014 215,754 185,000 - 185,000 72,925 39,247 - 40,630 41,357 - 4,129,608 $ 1,724,569 - $ 3,351,442 $ 778,166 Permanently Restricted $ 3,656,202 $ $ Total $ - $ 1,809,800 304,768 - 185,000 - 39,247 - 655,603 41,357 $ 2,380,172 Property, Plant and Equipment Patient Transport Vehicles Computers and Equipment Less: Accumulated Depreciation NET PROPERTY, PLANT AND EQUIPMENT 98,676 499,827 34,148 - 98,676 533,975 103,196 486,136 34,148 - 103,196 520,284 598,503 552,676 34,148 34,148 - 632,651 586,824 589,332 518,237 34,148 34,148 - 623,480 552,385 - - 45,827 71,095 - - 45,827 71,095 Pledges Receivable, Net 70,869 Beneficial Interest in Perpetual Trust - TOTAL OTHER ASSETS TOTAL ASSETS 98,669 70,869 $ 3,468,138 $ 876,835 169,538 462,413 462,413 98,669 - 631,951 462,413 $ 462,413 $ 4,807,386 136,435 - $ 1,932,099 $ 951,671 893,725 461,222 296,068 136,435 432,503 461,222 461,222 296,068 - Accounts Payable and Accrued Liabilities Deferred Revenue Deferred Rent TOTAL CURRENT LIABILITIES NET ASSETS TOTAL LIABILITIES AND NET ASSETS $ 262,876 $ - $ - - - - - 876,835 $ 3,468,138 $ 876,835 14,925 23,994 301,795 3,166,343 $ 262,876 $ 543,896 - $ - - - - - $ 543,896 Contributions Government Grants Interest Income In-Kinf Contributions Change in Beneficial Interest in Perpetual Trust - Gain on Disposal of Property and Equipment 16,698 34,100 301,795 594,694 462,413 4,505,591 1,337,405 951,671 461,222 2,750,298 $ 462,413 $ 4,807,386 $ 1,932,099 $ 951,671 $ 461,222 $ 3,344,992 SPLASH $ 5,193,243 $ 1,662,683 - $ Temporarily Restricted Unrestricted - $ 6,855,926 Permanently Restricted $ 4,033,575 $ 1,374,988 $ Total - $ 5,408,563 - 185,000 - 185,000 777 - - 777 96,268 - - 96,268 - - 29,611 29,111 2,562 - - - - 1,191 7,136,208 4,130,620 1,559,988 29,611 5,720,219 (1,922,519) - - 1,857,663 (1,857,663) - - 7,209,853 (74,836) 1,191 7,136,208 5,988,283 (297,675) 29,611 5,720,219 185,000 - 185,000 1,826 - - 1,826 89,703 - - 89,703 - 1,191 1,191 2,562 - - TOTAL REVENUES 5,287,334 1,847,683 Net Assets Released from Restrictions 1,922,519 TOTAL REVENUES & OTHER SUPPORT Expenses Program 654,490 - - 2,629,956 - - 890,152 - - 4,174,598 - - 431,680 - - 774,637 - - TOTAL EXPENSES 5,380,915 - CHANGE IN NET ASSETS 1,828,938 NET ASSETS - Beginning of Year Research TOTAL PROGRAM EXPENSES Management and General Fundraising 654,490 2,629,956 890,152 4,174,598 874,245 - - 874,245 2,630,062 - - 2,630,062 867,853 - - 867,853 4,372,160 - - 4,372,160 366,957 - - 366,957 774,637 827,054 - - 827,054 - 5,380,915 5,566,171 - - 5,566,171 (74,836) 1,191 1,755,293 422,112 (297,675) 29,611 154,048 1,337,405 951,671 461,222 2,750,298 915,293 1,249,346 431,611 2,596,250 $3,166,343 $ 876,835 $ 462,413 $4,505,591 $1,337,405 $ 951,671 $ 461,222 $2,750,298 431,680 NET ASSETS - End of Year 16,698 34,100 14,925 23,994 Making a BIG 18 $ Total $ 461,222 $ 43,344,992 LIABILITIES AND NET ASSETS Current Liabilities Permanently Restricted Revenues and Other Support Patient Services Other Assests Temporarily Restricted Unrestricted Education 2014 2015 594,694 8% Management & General 12.2% Advocacy & Education 14.4% Fundraising 16.5% Research 48.9% Care Services 19 The ALS Association Greater Philadelphia Chapter 321 Norristown Road, Suite 260 Ambler, PA 19002 THANK YOU for the outpouring of support. #ALSIceBucketChallenge The ALS Association’s Mission: Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support. www.alsphiladelphia.org 215.643.5434 20 Follow us on: @ALSPhiladelphia photo credit: Richard Hertzler - 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