PDF Annual Report `10 1.6 - Parkinson`s Disease Foundation

PARKINSON'S DISEASE FOUNDATION
commitment. community. impact.
Annual Report 2010
The mission of the
Parkinson's Disease Foundation® (PDF® )
is two-fold: to understand and find the
cure to Parkinson's disease and related
movement disorders; and, for as long
as this search continues, to ensure that
those individuals and families who live
with Parkinson's are able to achieve
and maintain the best possible
quality of life.
TABLE OF CONTENTS
2
Letter from Leadership
4
PDF Advances in 2010
6
Commitment
10
Community
14
Impact
18
Financial Reports
20
Donors: Events
22
Donors: PDF Champions
25
Donors: 2010 Listing
LETTER
FROM
LEADERSHIP
Dear Friend of the Parkinson’s Disease Foundation:
We are often asked: How would you describe PDF to someone you had just met in
an elevator, as you journey from the ground to the 15th floor, where our offices are?
Okay, admittedly this is a bit of a New York City-oriented question (after all, we have
more 15th floor offices here than do most cities), but you get the point.
To close in on the question, we decided to frame this year’s annual report around
three words that we feel capture the essence of PDF’s spirit, strategies and
successes — and can be uttered in a brief elevator ride. Here they are: Commitment.
Community. And Impact.
First, Commitment. The very word calls out the heart of PDF’s story: more than a
half-century of delivering on the promise of our founder, William Black, to help accelerate the cure for Parkinson’s disease (PD) by supporting research of the highest caliber
and relevance to the needs of the people who live with the disease. This commitment will be secure until that day when we are able, joyfully, to close the curtains on
the Parkinson’s story.
This commitment was evident in 2010 in our support of Parkinson’s researchers at
several major university centers in the United States and beyond. We do not tell
these scientists what to do; we ask them for their best ideas and then provide,
through rigorous peer review, a selection process that centers on just three questions
about their proposed work. One question is, is it the best science? The second is,
does it add materially to what we already know? And the third is, will it be relevant to
understanding and stopping Parkinson’s disease?
Our second word is Community. Actually, we have several communities. The
first is the women and men who live with Parkinson’s, along with their partners,
sons and daughters, and friends. We interact with these folks in a variety of ways.
One is including them as advisors for our own programs — primarily though our
People with Parkinson’s Advisory Council, the first of its kind in the Parkinson’s
community. Another one is providing them with authoritative and timely information — through our website, our publications and educational meetings, both
in-person and online. A more recent initiative is engaging them in the process of
Parkinson’s clinical research, primarily through our Parkinson’s Advocates in
Research (PAIR) program which “pairs” talented patient advocates with real-world
challenges in clinical research.
2
PDF Annual Report 2010
Another community is the doctors and scientists who conduct the research and provide
the medical services for people with Parkinson’s. We serve this community in various
ways — from screening clinicians for our physician referral list, to supporting the work of
the Parkinson Study Group, the nation’s leading consortium of Parkinson’s researchers.
The third word is Impact. As with the other two words, the idea of “impact” has more
than a single side to it. In the context of limited resources, this means that we must
carefully choose the projects that we take on for their likely impact. This in turn means
that we do not duplicate activities that are being done, or have been done, by other organizations. For example, the online nursing education course that we led is the first of
its kind ever to have been attempted. So is our Clinical Research Learning Institute,
which trains people with Parkinson’s to be research advocates.
Making an impact also means that we need to continuously evaluate what we do to
ensure that it meets community needs, clearly and efficiently. The point is that it is not
enough to just have good ideas, strong people or good money behind them; you have
to be able to demonstrate that what you are doing actually makes a difference to the
communities you serve. What we are saying would be true for any organization, but it is
especially true in a not-for-profit where the “bottom line” is so much more than the
financial return on investment.
Thank you! We invite you to read this report carefully and critically — whether or not we
have the pleasure of seeing you “on the elevator!”
Sincerely yours,
Robin Anthony Elliott
Lewis P. Rowland, M.D.
Executive Director
President, Board of Directors
LEADERSHIP
As we like to say in each annual report, nothing of what we do — not the pursuit of our
commitment, not the service to our community, and not the certification we make of the
impact of the work that we do — would be possible without the help of those who
support us financially. At the start of each fiscal year, we must start from scratch to raise
the money we need — about $10 million a year — to fund the work that has marked the
Parkinson’s Disease Foundation since 1957. To our donors who have helped to make
these efforts possible, we extend our deepest gratitude. We hope that you are as proud
of the work you have supported as we are to have undertaken it.
3
ADVANCES
PDF
IN
2010
The Parkinson's Disease Foundation supports research and ideas that will improve the lives and futures of people touched by Parkinson’s. Because of your
support in 2010, PDF was able to accomplish the following:
1
2
Funded $5.5 million in Parkinson’s research — including grants to 37
individual investigators, 39 fellows and the scientific teams at three
major academic centers — whose creative and novel ideas will bring
us closer to finding new treatments and a cure.
3
4
Ensured that the findings of Parkinson’s research are accessible to
everyone by launching a “What Does it Mean?” news feature and
blog entitled, Parkinson’s Insights, both of which provide space to
translate research news, offer updates on scientific meetings and
feature guest posts by community members.
Distributed 100,000 educational publications and advised, through our
National HelpLine, thousands of people with Parkinson’s, family members and health care professionals from all 50 states and six continents,
on issues relating to diagnosis, treatment, care partner concerns and more.
4
Welcomed the participation of our friends online, with 10,000 individuals
viewing at least one of six innovative online educational seminars; and
thousands more sharing their stories, creative works, photos and videos
with each other on PDF.org, Facebook, Twitter, YouTube and Flickr.
5
6
7
8
Expanded our network of PDF Research Advocates to include more
than100 individuals who have been trained through the Clinical
Research Learning Institute and who are now ready to advance science
by bringing their voices to important issues in Parkinson’s research.
Led a community effort to develop an online nursing course,
Parkinson’s Disease Across the Lifespan: A Roadmap for
Nurses, for which 6,400 nurses have now registered and are
learning about the latest in Parkinson’s care.
Showed the world the impact of Parkinson’s through the
unveiling of the first Parkinson’s Quilt, featuring panels
created by more than 600 people, at the 2nd World
Parkinson Congress, in Glasgow, Scotland.
Advocated for a larger recognition of Parkinson’s Awareness Month
in April, ensuring that the Parkinson’s community rises to the forefront
of the national consciousness, by distributing our message to more than
100,000 people through our Awareness Month toolkit, print and online
campaigns and a community t-shirt design contest.
9
10
Advanced our research, education and advocacy programs
under the advisement of our People with Parkinson’s Advisory Council, now in its fifth year — the first group of its kind
in the Parkinson’s community.
Earned a Four-Star Rating from Charity Navigator, once
again, making PDF the only Parkinson’s charity to receive
both this and the Charity Seal of Approval from the Wise
Giving Alliance of the Better Business Bureau (BBB).
5
COMMITMENT
For more than a half century, the Parkinson's Disease Foundation’s commitment to the Parkinson's community has remained the same — funding research
of the highest caliber while providing easily accessible, high quality information to
people living with the disease. Since our founding in 1957, PDF has dedicated
over $85 million to fund the research of leading scientists throughout the world
and has funded over $34 million worth of educational and advocacy initiatives to
support people with Parkinson’s, their families and care partners.
A New Strategy for Neuroprotection in Parkinson’s Disease
In a new analysis of current Parkinson’s
they point out, the development of Parkinson’s is
research, Robert E. Burke, M.D., and his col-
also due to problems with communication, which
leagues at Columbia University, with funding from
takes place through the cells’ axons. Much like
PDF, found that only about 30 percent of a per-
telephone lines downed by a powerful storm, the
son’s dopamine
researchers say that PD is a storm that disrupts
neurons have
the proper communication of dopamine in the
died by the time
brain, causing Parkinson’s symptoms before nerve
an individual is
cells completely die.
diagnosed with
the disease.
An artist’s rendering of the axonal arborizations of a healthy dopamine neuron (left) and
of the same, but weakened neuron as it might
appear in Parkinson’s disease. A loss of
axons can lead to the appearance of Parkinson’s symptoms before the neuron dies.
These new
The new hypothesis — that people newly
diagnosed with Parkinson’s may have many more
dopamine neurons than previously thought — pro-
findings contrast
vides grounds for optimism that therapies aimed at
with a widely-
protecting these cells can be effective for treating
cited number
Parkinson’s. It suggests the value of a new em-
from previous studies that 50-70 percent or more of
phasis on neurorestoration therapies that would
these cells have been lost at the time of diagnosis.
protect neurons by improving the health of axons.
The motor symptoms of Parkinson’s are
Restoring the health of axons may alleviate motor
thought to develop when dopamine neurons die,
symptoms, prevent cell death, and, the authors
but in Dr. Burke’s report, which appeared in the
say, possibly slow PD progression. The scientists
June 2010 issue of Annals of Neurology, he and
caution that the field of understanding mecha-
his colleagues argued that it is more than simply
nisms of axon regeneration and the potential for
cell death that leads to the onset of PD. Instead,
axon regrowth is in its early stages.
6
PDF Annual Report 2010
Increasing Our Understanding of Cognitive Impairment in Parkinson's
Ranging from mild attention difficulties to dementia, cognitive
impairment is a debilitating symptom of Parkinson’s. With funding from PDF’s International Research Grants and Fellowship Program, Ryan Walsh, M.D., Ph.D., of the University of Alabama at
Birmingham, is using fMRI (functional MRI) imaging to identify
the anatomical features underlying cognitive impairment in Parkinson’s and to determine whether there are differences in how peoA cross-sectional view of a healthy
brain as imaged using magnetic resonance imaging (MRI). Advanced forms
of this imaging technique allow scientists to see changes in the brain that
might be associated with Parkinson’s.
ple with or without cognitive impairment respond to dopaminebased medications. The results may lead to imaging biomarkers
for evaluating the nature, degree and progression of cognitive
dysfunction in Parkinson’s.
Funding Innovative Research that is Unlikely to Secure Funding Through
More Traditional Sources
With funding from PDF, Gammon Earhart, P.T., Ph.D., of the
Washington University School of Medicine, is examining the
role of partnered dance in Parkinson’s. This study represents
one of the first to examine the effectiveness of a long-term,
community-based partnered dance exercise program for
individuals with Parkinson’s and one of the first to evaluate
their medication.
The initial results are promising, suggesting a clear improvement in disease severity (as assessed by the UPDRS, a
rating scale used to measure disease progression) in those
People with Parkinson’s receiving instructor feedback during
a partnered dance session.
who are exercising. Furthermore, this study suggests that the
benefits of six months of exercise were greater than those of just three months of exercise, with benefits maintained at 12 months relative to the six-month time point.
This work paves the way for future studies to determine the relative effectiveness of
different forms and doses of exercise for people with Parkinson’s and for studies of the
mechanisms by which dance may convey benefits.
COMMITMENT
the effects of exercise by assessing individuals who are off
7
COMMITMENT
2010 PDF-FUNDED RESEARCHERS
PDF is proud to have contributed to the important work of the following scientists.
Research Center Teams
Columbia University Medical Center
Robert Burke, M.D.
Lorraine N. Clark, Ph.D.
Stanley Fahn, M.D.
Lloyd Greene, Ph.D.
Elan D. Louis, M.D., M.S.
Karen Marder, M.D., M.P.H.
Pietro Mazzoni, M.D., Ph.D.
Serge Przedborski, M.D.,
Ph.D.
Seth Pullman, M.D.
Yaakov Stern, Ph.D.
David Sulzer, Ph.D.
Jean Paul Vonsattel, M.D.
Cheryl Waters, M.D.
Nancy Wexler, Ph.D.
Ai Yamamoto, Ph.D.
Rush University Medical Center
Weill Cornell Medical Center
Brandon R. Barton, M.D., M.S.
Bryan A. Bernard, Ph.D.
Cynthia L. Comella, M.D.
Jennifer G. Goldman, M.D., M.S.
Christopher G. Goetz, M.D.
Deborah A. Hall, M.D., Ph.D.
Katie Kompoliti, M.D.
Jeffrey Kordower, Ph.D.
Kathleen M. Shannon, M.D.
Glenn T. Stebbins, Ph.D.
Leo Verhagen, M.D., Ph.D.
M. Flint Beal, M.D.
Claire Henchcliffe, M.D.,
D.Phil.
Melissa J. Nirenberg, M.D.,
Ph.D.
Fellowship Awardees
James T. Boyd, M.D.
University of Vermont
PSG/PDF Mentored Clinical
Research Award
International Research Grants Awardees
Daniel Schneider, M.D.
Columbia University Medical Center
Gammon Earhart, P.T., Ph.D.
Washington University of Medicine
Khurshida Shahidullah, Ph.D.
Weill Cornell Medical College
Tobias Kurth, M.D., Sc.D.,
and Robert Y. L. Zee, Ph.D., M.P.H.
Brigham and Women’s Hospital
Thomas Durcan, Ph.D.
Montreal Neurological Institute,
McGill University
Alexander Shtilbans, M.D.
Columbia University Medical Center
Sheng-Han Kuo, M.D.
Columbia University Medical Center
Mary Ann Thenganatt, M.D.
Columbia University Medical Center
Era Hanspal, M.D.
Columbia University Medical Center
Christina Vaughan, M.D., M.H.S.
Rush University Medical Center
Christopher Hess, M.D.
Columbia University Medical Center
Aleksandar Videnovic, M.D., M.Sc.
Northwestern University Feinberg
School of Medicine
PDF/AANF Clinician Scientist
Development Award
Sachin Kapur, M.D.
Rush University Medical Center
James Maas, M.D., Ph.D.
University of California,
San Francisco
Markos Poulopoulos, M.D.
Columbia University Medical Center
Ryan Walsh, M.D., Ph.D.
University of Alabama at Birmingham
Maria Xilouri, Ph.D.
Biomedical Research Foundation of
the Academy of Athens
Leo J. Pallanck, Ph.D.
University of Washington
David Park, Ph.D.*
University of Ottawa
Hardy Rideout, Ph.D.
Biomedical Research Foundation
of the Academy of Athens
Antonio Strafella, M.D., Ph.D., F.R.C.P.C.
Toronto Western Hospital
University of Toronto
Christian Wider, M.D.,*
and Matthew J. Farrer, Ph.D.
CHUV Lausanne and University
of British Columbia
Cyrus Zabetian, M.D., M.S.
VA Puget Sound Health Care System,
Seattle Division, University of Washington
*Denotes second consecutive year of funding.
In 2010, PDF funded $5.5 million in Parkinson’s research —
including grants to 37 individual investigators, 39 fellows
and the scientific teams at three major academic centers.
8
PDF Annual Report 2010
Providing Up-to-Date Information and Practical Advice for Living with Parkinson’s
Recognizing the on-going need to provide
people with Parkinson's and their families with
up-to-date research information and practical
advice for living with Parkinson's, PDF continued in 2010 our popular PD ExpertBriefings
online educational seminars. This program provided people with Parkinson's around the country, and the world, with first-hand access to the
insights of some of those who are at the forefront of Parkinson's research and care.
These bi-monthly interactive online programs addressed topics pertinent to the Parkinson’s community including research updates,
nutrition and Parkinson’s, legal issues and care
partner concerns. Each 60-minute session included a question and answer period and was
archived on the PDF website for one year so
that individuals could participate from the comfort of their own home, 24 hours a day, seven
give the families of people
with Parkinson’s hope for
solutions and a chance for
a better life. Thank you!
Joan S., San Francisco, CA
In 2010, over 10,000 individuals representing
all 50 states as well as 22 countries around
the world viewed at least one online
educational seminar.
”
COMMITMENT
days a week.
“PDF’s online programs
9
COMMUNITY
At the heart of PDF’s work is the participation of people with Parkinson’s.
Through its educational and advocacy programs, PDF offers the tools and resources to empower individuals to become involved, raise awareness and help
bring about change.
PAIRing up to Change the Parkinson’s Research Process
At PDF, we believe that one way to help
accelerate the development of new therapies for Parkinson’s is through “pairing”
people with Parkinson’s — trained research
advocates — with people in government,
science and industry to improve the
process that brings us new medicines.
Through our Parkinson’s Advocates in
Graduates of the 2010 Clinical Research Learning Institute
Research (PAIR) program, advocates are
advancing science by educating their communities about clinical study participation; partnering with industry, academia and government to ensure that the voices of people with Parkinson’s are heard; working
with scientists to design, run and review research studies; and serving as formal representatives on local,
state and national clinical research review and advisory boards.
PDF Research Advocates participate in a three-day Clinical Research Learning Institute. This PAIR
training program features leading clinical research experts from academia, government and industry, and
former Learning Institute graduates. Coursework includes the science of Parkinson’s disease, the clinical
research process and advocacy skills-building — preparing participants to be informed and knowledgeable
in their roles as Research Advocates. In 2010, 40 individuals completed the training.
Graduates of the Learning Institute work closely with PDF staff and fellow Research Advocates
through ongoing education, resource sharing and networking opportunities to strengthen the role that
people with Parkinson’s can play in the clinical research process.
10
PDF Annual Report 2010
Using Professional Expertise and Personal Dedication
to Advance Science
Just six months after participating in the 2010 Clinical Research
Learning Institute, Sue Dubman of Boston, MA, is helping the Parkinson’s community in a way that powerfully leverages her 15 years of
professional experience in government, health, information technolSue Dubman
ogy and clinical research. As a PDF Research Advocate, Ms. Dubman is working to solve the problem of data standardization across
Parkinson’s studies through her service with the Coalition Against Major Diseases (CAMD) Critical Path Institute, a nonprofit institute which brings together industry and government agencies to improve the development of new therapies by streamlining data. She has also reviewed
new data standards created by the National Institute of Neurological Disorders and Stroke
(NINDS) — a branch of the National Institutes of Health (NIH) that funds Parkinson’s research —
and has provided her expert feedback on behalf of PDF and the Parkinson’s community.
Researchers and Advocates Recognize Parkinson’s Research Participants
In April 2010, a group of PDF Research Advocates, including Frances Waldynski of
Chicago, IL, decided to recognize “partners in progress” — individuals from the Chicago
area who have participated in trials. The advocates joined forces with local doctors, clinical
trial coordinators and PDF staff to organize an educational forum entitled, Partners in
Progress: The Essential Role that People with Parkinson's Play in Clinical Research. In addition to honoring research participants, the event brought together over 200 individuals, and
helped to raise awareness of the studies taking place in the area.
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In 2010, PDF expanded
its network of
research advocates to
include more than
100 individuals
from 36 states.
COMMUNITY
.
...
.
11
COMMUNITY
Raising Awareness of the Impact of Parkinson’s
In 2010, PDF took the lead in advocating
for a larger recognition of Parkinson’s Awareness Month, ensuring that the Parkinson’s
community rises to the forefront of the national
consciousness. In addition to helping the
Parkinson’s community coordinate activities in
April, PDF distributed its message to more
than 100,000 people through its Awareness
Month toolkit, print and online campaigns and
“Awareness of Parkinson’s leads to compassion, compassion leads
to giving, giving leads
to research, and research
will lead to a cure.
a community t-shirt design contest.
”
Pamela Quinn
New York, NY
PDF Research Advocate
Arizona Mom Wins PDF’s Parkinson’s Awareness Month T-Shirt Contest
In 2010, PDF launched its first Parkinson’s Awareness Month
T-Shirt Design Contest, which challenged members of the Parkinson’s community to design a t-shirt incorporating the Parkinson’s
tulip and PDF’s trademark colors, yellow and green.
Heather Hinrichsen, a 36-year old mom who lives with young
onset Parkinson’s disease, decided to give it a try. Her entry — the
Fight to Win design — received over 800 of the 1,900 votes, beating out four other finalists. Ms. Hinrichsen said, “I hope that by
sharing my story, people will realize that Parkinson’s is not just an
older person’s disease. Through the t-shirt, I want to spread the
message to everyone to fight Parkinson’s. I plan to fight until I win
— I have Parkinson’s, but it doesn't have me!”
12
Members of PDF’s
People with Parkinson’s
Advisory Council proudly
wear the PDF awareness
month t-shirt.
PDF Annual Report 2010
The First Global Quilt for Parkinson’s
In 2010, more than 600 people from 16 countries participated in the Parkinson's Quilt Project,
the first global quilt project to focus the world's
attention on the impact of Parkinson’s and on the
continuing urgency to find a cure.
Each 2’ by 2’ quilt panel included photos,
illustrations and items that expressed the experience of each quilter with Parkinson's. The quilt
was displayed for the first time at the 2nd World
Parkinson Congress in Glasgow, Scotland in
September 2010.
To ensure that the quilt continues to raise
awareness, PDF is offering sections of the quilt for
“‘Amazing’ is a good word
to describe my experience as
part of the Parkinson’s Quilt
Project. Each panel provides
an open window into that
quilter’s journey living with
or affected by Parkinson’s.
rental and display to the general public in 2011.
Sharon Standish
”
Marysville, WA
Finding a Community Online
As social networking websites continue to change the
way individuals find information and support, PDF responded
in 2010 by expanding its presence on Facebook, YouTube and
Twitter. PDF’s online communities on these sites now inLinda Giorgilli
One of these members is Linda Giorgilli, who first signed
up for Facebook because she thought it would be a nice way
to connect with friends. However, after finding the PDF Facebook page, she has
found the social networking site to be a place where she has been able to share her
experience caring for her late father who lived with Parkinson’s. As she watched
people “writing” on PDF’s page, seeking advice and sharing their stories with other
individuals, Ms. Giorgilli began responding to their inquiries about life with Parkinson’s herself. As Ms. Giorgilli says, “The value of what unfolded with social networking — the power and strength that it gave me to cope with the loss of my father
and fight for this cause — is immeasurable.”
COMMUNITY
clude over 8,000 individuals.
13
IMPACT
PDF’s diverse programs have a single underlying objective: to fund the most
promising ideas that will have a significant impact upon the Parkinson’s community. PDF selects these projects after seeking the input and guidance of
experts in the field of Parkinson’s: leading researchers, clinicians, nurses,
health care professionals and people living with Parkinson’s.
Scientists Discover Key Process that Contributes to Common Form of Parkinson’s
Research led by Scott A. Small, M.D., of
new technique called gene expression profiling to
Columbia University with funding from PDF, has
compare which genes were “switched” on or off
identified a molecular pathway — the polyamine
in cells from two adjacent areas of the brain —
pathway — that may explain how Parkinson’s
one affected by PD, the other not. They found that
a gene responsible for preventing the accumulation of a certain class of chemicals in the cell,
called polyamines, was lower in those people who
had Parkinson’s compared to those who did not.
The finding of an association between high
polyamine levels and PD — if confirmed — may
have two potentially important clinical implications.
Since polyamines can be measured in blood and in
Advanced magnetic resonance imaging employed by
Dr. Small to identify areas of the brainstem affected by
PD for further genetic analysis. The yellow line in the
brain cross-section shows where in the brain the
images on the right are derived. The yellow circle (middle panel) on brainstem cross-sections from postmortem tissue show where the advanced MRI (right)
identified areas for further analysis.
cerebrospinal fluid, they may be used in tests for
early detection of Parkinson’s or even for monitoring the effectiveness of future therapies. Currently, no such blood or spinal fluid tests are
available. In addition, lowering polyamine levels in
develops in people who have no family history
cells has been suggested by the authors as a
of the disease.
novel approach to alter the course of Parkinson’s.
Presented in the September 2010 issue of the
Further research is needed to determine whether
Proceedings of the National Academy of
reducing polyamines may in fact ease Parkinson’s
Sciences, Dr. Small and his colleagues used a
symptoms or slow disease progression.
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PDF Annual Report 2010
Ensuring the Best Nursing Care for People with Parkinson’s
Nurses are often a first point of contact for
people living with Parkinson’s. Not only do
nurses provide medical care; they also play a
key role in ensuring that people with Parkinson’s have the best possible quality of life.
Unfortunately, there is little information on the
disease designed specifically for nurses. To
address this need, PDF led a collaborative
effort with the National Parkinson Foundation
and the American Parkinson Disease Association in 2010 to develop an online educational
nursing course, Parkinson’s Disease Across
the Lifespan: A Roadmap for Nurses.
This free online course ensures that
nurses have the opportunity to learn the latest
in Parkinson’s comprehensive care. Designed
by Parkinson’s nurse specialists, the course
was taped in front of a live audience on May
21 and made available via a live and archived
webcast to thousands of nurses throughout
the US and around the world.
The course includes modules discussing
the challenges of Parkinson’s throughout the
lifespan, and the vital role that nurses can play
in managing care. Modules are led by Parkinson’s nurse specialists, physical therapists
“The exceptional collaboration among PDF and other
Parkinson’s organizations
has made this a milestone
for movement disorder
nursing. This course
addresses a critical gap in
improving the quality of life
for people living with
Parkinson’s. Nurses now
have access to information
to provide evidence-based
practice across a continuum of care.
”
and people with Parkinson’s, and continuing
Lisette Bunting-Perry, Ph.D., R.N.
education credits are available.
Parkinson’s Nurse Specialist
IMPACT
As of June 2011, over 6,400 nurses from all
50 states and 29 countries have registered for
the course and are learning about the
latest in Parkinson’s care.
15
IMPACT
Cultivating Young Scientists to Research Parkinson's
In her current role as an advisor to the PDF HelpLine, Christina
the disease. But she was unsure
Vaughan, M.D., M.H.S. — a PDF-
at that time as to what form her
funded post-doctoral fellow in
career would take when it was
movement disorders at Rush Uni-
suggested that she apply for a
versity Medical Center in Chicago,
PDF summer fellowship.
IL — helps to answer unusual and
Christina Vaughan, M.D., M.H.S.
Dr. Vaughan was accepted
difficult questions about Parkin-
and spent the summer of 2002
son’s disease. But when Dr.
at the University of Pennsylvania
Vaughan first came to PDF nine
Parkinson’s Disease and Move-
“PDF’s summer
fellowship opened
up opportunities to
work with some of
the best Parkinson’s
researchers and
to have a very
meaningful clinical
experience with
people living with
Parkinson’s.
”
several of her loved ones live with
years ago, it was as an ap-
ment Disorders Center, in
plicant for one of our Sum-
Philadelphia, PA, examining peo-
mer Student Fellowships.
ple living with Parkinson’s dis-
This program funds stu-
ease who had undergone deep
dents at several levels,
brain stimulation (DBS), and inter-
from advanced undergrad-
viewing them about their post-
uates to graduate and
surgery experience.
medical students, to pur-
Following the completion of
sue Parkinson’s-related
her medical degree and a resi-
summer research projects
dency in neurology at the Univer-
under the guidance of
sity of Pittsburgh, she moved to
leaders in the field.
Rush, where she is training to be
Dr. Vaughan already
a Parkinson’s specialist with a
had a personal interest in
special interest in the mental
Parkinson’s, having seen
health of people with Parkinson’s.
By leveraging its research investments
into supporting great ideas generated by
Parkinson's scientists, PDF aims to facilitate
the next big discovery in PD.
16
PDF Annual Report 2010
Reduction in Parkinson’s Medications Tied to Withdrawal Syndrome
Reducing the dosage of dopamine ago-
dosage, five people developed persistent
nists in people with Parkinson’s may
anxiety, panic attacks, depression, orthostatic
produce withdrawal symptoms, such as
hypotension (low blood pressure), fatigue,
dizziness, anxiety and panic attacks, accord-
pain and drug cravings. Dr. Nirenberg has
ing to a report by Melissa J. Nirenberg,
named this phenomenon “dopamine agonist
M.D., Ph.D., and her colleague Christina A.
withdrawal syndrome” or DAWS. The syn-
Rabinak, of New York-Presbyterian Hospi-
drome tended to develop immediately follow-
tal/Weill Cornell Medical Center, in the Jan-
ing drug tapering, which resembles the
uary 2010 issue of Archives of Neurology.
course of withdrawal symptoms in most situ-
With funding from PDF, Dr. Nirenberg
ations of drug dependence or addiction. In
performed a retrospective study examining
addition, the individuals who experienced
the medical records of 93 people living
DAWS had all previously experienced an im-
with PD, 40 of whom had received
pulse control disorder, such as a gambling ad-
dopamine agonists and 53 of whom had
diction, hypersexuality or excessive
been treated with other medications. The
spending. Individuals with DAWS requested
participants were similar with regard to
to resume their prior high dose of dopamine
age, disease duration, gender and age of
agonists, even though their PD motor symp-
Parkinson’s diagnosis.
toms were well controlled.
She and her colleague found that dur-
The study involved a small number of
ing routine Parkinson’s care, the dopamine
people, and more research is required to
agonist dosages of 26 people within the
learn about incidence, risk factors, time
group had been reduced by their doctors.
course and pharmacological aspects of
This “tapering-off” was often performed
DAWS, as well as strategies to avoid or
because the person was experiencing an
treat the syndrome. For people with PD
impulse control disorder, such as pathologi-
and physicians who plan to reduce
cal gambling, compulsive eating and com-
dopamine agonists, it is important to be
pulsive shopping — all of which can be side
aware that symptoms of withdrawal can
effects of the medications.
occur, especially in individuals with a his-
Following the reduction in medication
tory of anxiety and addictive behaviors.
IMPACT
17
FINANCIAL REPORTS
Statement of Financial Position
June 30
2010
2009
Assets
Cash and cash equivalents
$670,883
$1,992,176
Contributions and other receivables
1,055,553
251,186
81,764
107,168
11,045,254
10,863,814
Fixed assets, net
327,069
426,072
Other noncurrent assets
293,475
296,540
Investments — restricted as to use
201,024
211,854
$13,675,022
$14,148,810
Accounts payable and accrued expenses
$823,380
$921,697
Grants payable
1,368,427
1,759,079
201,024
211,854
2,392,831
2,892,630
Unrestricted
9,547,208
9,857,981
Temporarily restricted
1,734,983
1,398,199
11,282,191
11,256,180
$13,675,022
$14,148,810
Other current assets
Investments, at fair value
Total assets
Liabilities and net assets
Deferred compensation plan
Total liabilities
Net assets
Total net assets
Total liabilities and net assets
Percentage of dollars spent
on our mission
81%
18
In 2010, PDF was awarded both a
four-star rating from Charity Navigator
(the highest) and the Charity Seal of
Approval from the Wise Giving Alliance
of the Better Business Bureau (BBB).
PDF Annual Report 2010
Statement of Activities
Year ended
June 30, 2009
Year ended
June 30, 2010
Temporarily
Restricted
Unrestricted
Temporarily
Restricted
Total
Unrestricted
$ 4,141,568
$610,493
$4,752,061
$4,152,633
$347,648
$4,500,281
3,761,135
-
3,761,135
2,729,727
-
2,729,727
Special events revenue, net
207,828
-
207,828
298,439
-
298,439
Investment income
805,386
-
805,386
(2,215,764)
-
(2,215,764)
Net assets released from restrictions
273,709
(273,709)
-
731,664
(731,664)
-
Total operating support and revenue
9,189,626
336,784
9,526,410
5,696,698
(384016)
5,312,682
Research
5,626,735
-
5,626,735
5,734,045
-
5,734,045
Public information/patient information
and referral services
2,071,164
-
2,071,164
2,406,201
-
2,406,201
7,697,899
-
7,697,899
8,140,246
-
8,140,246
574,680
-
574,680
549,159
-
549,159
1,227,820
-
1,227,820
1,423,220
-
1,423,220
Total supporting services
1,802,500
-
1,802,500
1,972,379
-
1,972,379
Total operating expenses
9,500,399
-
9,500,399
10,112,625
-
10,112,625
Change in net assets
(310,773)
336,784
26,011
(4,415,927)
(384,016)
(4,799,943)
Net assets, beginning of year
9,857,981
1,398,199
11,256,180
14,273,908
1,782,215
16,056,123
$9,547,208
$1,734,983
$11,282,191
$9,857,981
Total
Operating support and revenue:
Contributions
Bequests
Operating expenses:
Program services:
Total program services
Supporting services:
Management and general
Fundraising
Net assets, end of year
$1,398,199 $11,256,180
H OW Our Funds Were Spent | 2010
Advocacy 5%
Education
17%
Administration & Fundraising
Research
19%
59%
19
DONORS
The work of the Parkinson’s Disease Foundation is only possible because of
the generous support of numerous individuals, families, foundations and corporations. PDF gratefully acknowledges the following donors who are helping us
improve the lives and futures of people touched by Parkinson’s.
Bal du Printemps Pays Tribute to Philanthropists and the Power of Music
On May 12, 2010, nearly 300 guests gathered
Mr. Benjamin was diagnosed with Parkinson’s
for PDF’s annual Gala, Bal du Printemps, in New
disease in 1996 at the age of 38, and shortly
York City. The evening honored two long-time
thereafter, founded Light of Day. In the past ten
friends of PDF and was a festive tribute to the
years, Light of Day has held concerts in eleven
special significance of music as a healing and
countries, welcoming special guests such as
creative force for people living with Parkinson’s.
Bruce Springsteen, and raising $1 million for
John and Margo
Parkinson’s or-
Catsimatidis and
ganizations, in-
their children,
cluding PDF.
John Jr., and An-
The Catsimatidis family — John, Andrea,
Margo and John, Jr. — is presented with
the Page and William Black Family
Philanthropy Award.
As PDF Ex-
drea, were pre-
ecutive Director
sented with the
Robin Elliott
Page and William
noted, “Both the
Black Family Phi-
Catsimatidis fam-
lanthropy Award,
ily and Bob Ben-
in recognition of
jamin have been
PDF Executive Director Robin Elliott
presents Bob Benjamin with a personalized award, a painting created for him
by Cindy DeLuz, a person living with
Parkinson’s who is a participant in PDF's
Creativity and Parkinson's Project.
their years of generosity and leadership at PDF.
long-time partners
They were introduced, via video, by their close
in the cause and have provided inspiration to oth-
friend, former President William Jefferson Clin-
ers in the community through their philanthropic
ton, who spoke about the family’s commitment
efforts. We are proud to say that this year we
to bettering their community.
honor not just generous supporters, but also
Later in the evening, Robert “Bob” Benjamin
and The Light of Day Foundation were awarded
the Page and William Black Humanitarian Award.
20
true friends.”
PDF thanks this year’s Gala leadership for
making this event possible.
PDF Annual Report 2010
Celebrate Spring Engages Young New Yorkers in the Cause
On April 29, 2010, nearly 300 guests joined
PDF and the Young New Yorkers for the Fight
Against Parkinson’s committee for Celebrate
Spring. For the third year, Co-Chairs G. Pennington Egbert III, Missy Egbert Sheehan and
Greg Romero, Andrew Johnston, Emily Davis,
Will Rabbe, Natalie Glaser, and Jon Lawrence (left
to right) celebrate spring.
Celebrate Spring leaders and sponsors (left to
right): Missy Egbert Sheehan, G. Pennington
Egbert III, Georgina B. Schaeffer.
Georgina B. Schaeffer, whose fathers both lived
with Parkinson’s disease, led the event. They
did so with the help of a group of nearly 100
New Yorkers also dedicated to advancing a cure
for Parkinson’s. Proceeds from the event
support a research program identified by
Lucien Côté, M.D., a Parkinson’s specialist at
Columbia University.
PDF thanks its co-chairs and the Young New
Yorkers for the Fight Against Parkinson’s committee for their continued support of this event.
“It is imperative to
hold events like Celebrate
Spring, to reach out to a
younger generation and
let them know there are
ways that they, too, can
help in the fight against
Parkinson’s.
”
G. Pennington Egbert III
Raising the Stakes, Raising Funds
On November 10, 2010, more than
200 guests “Raised the Stakes” for
joyed games of chance, such as blackjack,
and competed to win exciting prizes. PDF
thanks event co-chairs Jose Cruz, Amy
Sole, Peter Dorn, Jeffrey Zygler and Dan
Spanton and the host committee for their
hard work in making this event a success.
EVENTS
Parkinson’s in New York City. Guests en-
21
DONORS
PDF Champions are the dedicated individuals — some with Parkinson's themselves, others who have friends, family and colleagues living with the disease —
who give their time and energy to raise awareness of Parkinson's and funds for
PDF in their local communities. In 2010, these volunteers have helped to move
the cause forward by organizing bake sales, running marathons, participating in
bike rides and walk-a-thons ... or by creating their own personalized pages on
the PDF website in honor of loved ones with Parkinson's.
June 14, 2010
Dear Parkinson’s Disease Foundation,
I just wanted to let you all know about something special
my kids did.
One Saturday in May, my children, Matthew, age 10
and Juliana, age eight and their friend, Canyon, decided
to operate a lemonade stand in front of our house.
They had been outside for a while and had already needed
a refill on the lemonade when I went out to check on them.
I was wearing my Parkinson’s Awareness Month T-shirt and
they asked me about it. So I explained what PDF was and a
little about Parkinson’s disease.
My son said, “Hey! That gives me an idea. Let’s
donate the money we make to PDF to help
Honey!” (Honey is their Grandmother who has Parkinson’s). They all agreed to donate it. I was very proud of
them and think it is a great thing to do with their money!
Please accept the donation of $20.40 from my children’s
lemonade stand.
Thank you,
Rhonda Cabello
22
PDF Annual Report 2010
Music for Parkinson’s Research
Nearly 200 music lovers and others dedicated to the fight against Parkinson's disease
gathered for the Eighth Annual Music for
Parkinson's concert on December 5, 2010, at
Rye Country Day School in Rye, NY. The event,
organized by Music for Parkinson's Research,
raised $37,000 in net proceeds for PDF’s
MPR Founder and PPAC Co-Chair David Eger, Ph.D., (left),
PDF Executive Director Robin Elliott and PPAC member
Rhona Johnson at the Eighth Annual MPR concert.
research programs.
The afternoon featured performances by
several leading chamber music artists including
John Stine, Gena Raps and the Attacca
Quartet. After the concert, guests enjoyed a
wine and cheese reception and chatted with
the musicians.
Music for Parkinson's was founded by three
individuals, led by David Eger, Ph.D., who has
worked with PDF for many years — especially
as a founding member and Co-Chair of PDF's
People with Parkinson's Advisory Council, a
group that advises the foundation on its
“We were thrilled by
the support from friends,
family, community
members and PDF staff
and board members who
came together to help raise
funds to find the cure for
this disease.
”
David Eger, Ph.D.
Golfing for a Cure
On August 11, 2010, 100 golfers gathered at the
Farms Country Club in Wallingford, CT, for the Fourth
Annual Zwick Pro-Am.
Named for long-time club member Lenny Zwick,
who lived with Parkinson’s for 25 years, the tournament featured 18 holes, a luncheon, a silent auction
and an awards dinner. Among the friends and family
of Mr. Zwick who participated were his wife Susan,
Mother and daughter, Susan (left) and
Stacey Zwick with Dave Melillo at the
Fourth Annual Zwick Pro-Am.
daughter Stacey and event organizer Dave Melillo.
The Pro-Am raised over $50,000 to benefit the research programs of PDF.
PDF CHAMPIONS
research, education and advocacy programs.
23
DONORS
In Action
The following list highlights our PDF Champions whose
efforts from July 1, 2009 to December 31, 2010 not only
helped PDF to fund promising research, but also served
to raise awareness in communities around the US of the
impact of this disease.
Matthew Arendt
Angela Berktold
Jon Bracamonte
Orange County Marathon
Laurel Burrill
Big Mountain Run
for Dad
Christopher Castaldo
Castaldo Walk
John Consolazio
Conzo's Run for Dara Chicago Marathon
Matthew Coz
Burning River 100-Mile
Run
Alexandra Cudby
2009 Pottery for
Parkinson's
Karen DeGraaf
David Eger, Ph.D.
Music for Parkinson’s
Research
EVB Parkinson's Disease
Fundraiser
Jill Faenza
Jocelyn Flores
Linda A. Gagner
Kathryn Garvey
Doug's Wild Ride
Jennifer Iaccarino
New York City Marathon
Randi S. Jacobs
Jerry Jensen
Lindsay Kaldor
Miami Marathon
David Kates
Elizabeth Keshish
Tennis Wrist Band Sale
Katie Linehan
Pie in the Face Fundraiser
Molly Riddick
Pancakes for Parkinson's
Jennifer Roach
Disney Princess HalfMarathon
Thomas C. Silver
Berlin Marathon
Lani Skelley
New Day, New Hope
Dance Show
Lauren Smith
Smith Family Tri-Mitzvah
Bridget Lotzer
Spirit Week Collection
Cynthia T. Loynd
Phil Sweet
An Evening of Comedy
featuring The Late Shift
Rev. Bernard Marton
Cowtown Ultra
Marathon
Tour for a Cure 2010
James McDermott
Wallace Tripp
David P. Melillo
Zwick Pro-Am
Wacounda Fest 5K/10K
Run for a Cure
Patty Mikutis
Melanie Webb
Ed Mobley
Sunday School Event
Debbie Weber
Big "M" Run
Greg Mocarski
Philadelphia Marathon
Lauren Williams
3 4 Fighting Parkinson's
Bike Ride
Quinn Morlock
The Run for Parkinson's
Cortney Gawron
Lori Morrow
Chicago Marathon
Brian Gilbart
Chicago Marathon
Jacqueline M. Paul
New York City Marathon
Linda Giorgilli Rice
24
Parameswaran Hariharan
Flying Pig Marathon
Audrey Winthrop
Parkinson Open Road
Race
Gillian Woods
Keeping the Pace
PDF Annual Report 2010
DONORS
The following are the names of individuals, families, foundations and
corporations who have made cumulative gifts of $500 or more between
July 1, 2009 and December 31, 2010.
Individuals
Irving and Lorraine Aaron
Dr. Shahid Atcha
Josh Bernstein
John Brady
Colman and Nancy Abbe
John and Anne Atherton
Richard A. Bernstein
Sandra Brawner
Kyle W. Abel
Harry Bailey
Bill and Terri Breach
Robert and Georgean Abels
Raghu Balasubramanian
Mr. and Mrs. David M.
Berwind, Sr.
Norman S. Abrams
Buck and Leslie Balkind
Andrew Abramson
Dr. and Mrs. Walter Ballinger
Shirley Abramson
Florence Barad
Stephen and Marsha Ackerman
George and Janet Barnard
Carol H. Adragna
Thomas Barr
Dr. Avadesh and Uma Agarwal
Heather Barry and Robert
Snyder
Sunil Agrawal
David and Jo Anne Bescherer
Michael and Tracess Brenner
Latchmin Bharat
Ruth Pollack and Martin
Bressler
Mr. and Mrs. Alan L. Bibby
Carol S. Brewer
Kevin and Debbie Biddle
Irving G. Brilliant
Andrea Billhardt
Toby Brimberg
Dr. Maurice and Sarah Birdwell
Bill Brink, Ronald Paulis, and
Richard Sherratts
Alan Blacher
John and Patty Brissenden
Lisa Bateson
Lewis Black
Doris Bato
Page Morton Black
Peter M. Bauer
Kyle Blackmon
Michael and Marcia Beck
David H. and Mary B. Blair
Bernie Beiser
Cliff and Arlene Blaker
Mr. and Mrs. Frank M. Bell, Jr.
James T. and Carol Blann
Janet and Lawrence Bell
Edward Bleier
Leslie Bell
Steven R. Block
Timothy Alexander
Alfonso C. Bellanca
Theodore and Flora Blumenthal
Ethel Allen
Mark Belotz
James and Suzy Bobo
Dr. Russell Brown and
Dr. Susanna Brown
George and Jodie Allen
Dr. Gardner and Patricia Bemis
Richard Bohlen
William and Sally Brown
Dr. Ron Alterman
Don and Carol Bender
Benjamin C. Bohr
Vivienne Bruckman
Paul Amidon
Robert Benjamin
Phyllis J. Bond
David and Susan Brunell
Mr. and Mrs. Richard Anastasi
Elizabeth S. Bennett
D. R. Booker
Bunyan Bryant
Terry Ancel
Paul L. Berger and Michelle
Berger
Andrew Bookout
Mr. and Mrs. Mark Budd
Edward C. Booth
Nancy Burke
Daryn Bourbin
Diana Bouton
Dr. Robert Burke and
Dr. Sharon Wardlaw
Richard Ahlvin
Kenneth and Ellen Aidekman
Robert M. Aiken
Mr. and Mrs. Roger E. Ailes
Barbara Albert
Richard S. Aldrich, Jr.
Mr. and Mrs. Thomas S.
Alexander
Mr. and Mrs. Nigel Andrews
Katrin Hillner Antram
James and Suzanne Bergoffen
Mr. and Mrs. Melvin Berlin
Robert and Diane Brogan
Mr. and Mrs. Arthur G. Broll, Jr.
Michael Bronder
James Brossett
James S. Brown
Michael Brown
Peter Brown
Gary Appel
Deborah Berman and
Bruce Greenberg
Dierdra Bowditch
Kimberly L. Fehrle Burns
Eric Appelbaum
Bernard Berner
Grace Bowman
Robert and Patricia Caldwell
Gigi Arledge
Daniel and Shelolia Bernstein
Roger M. Bowman
William C. Cameon
Geraldine Boyle
Joaquin and Angela Campo
Jeffrey and Shari Aronson
DONORS
Janet S. Andersen
Jill and Ken Brodkowitz
25
DONORS
Individuals
Lourdes E. Campon
Arlene and Walter Cooper
Mr. and Mrs. Chris J. Dicharry
Stafford Elias
Robert and Mary Capaldi
Mr. and Mrs. Thomas A. Cooper
Mark Dickinson
Susan Ellefson
Joseph Capizzi
Katharine T. Cornelius
E. Scott Dillon
Karen Card
Arnold S. Corrigan
Alexander Dimitrief
Robin A. Elliott and
Dr. Sheila Gordon
Norma M. Cardinal
Norman and Helen Coulson
Mr. and Mrs. Raymond W. Carlin
Lucille Coz
James G. Dinan
and Elizabeth Miller
Ben Carter
Matthew Coz
The Caruso Family
Peter Coz
James and Nancy Casty
Mary Cranston
Lee S. Casty
James Crosby
Ronald G. Casty
Dave and Andy Cross
John and Margo Catsimatidis
Sally Cross
Gregory and Amy Cecchi
Jose R. Cruz
Selina and Johnson Cha
Alexandra Cudby
Mr. and Mrs. Bernard D. Chalfin
Gene and Judi Curry
Carol and Stephen Chase
Christopher Curtis
Mr. and Mrs. Adam Chasnow
John Czarnecki
Charles Chernick
David D'Amico
Susan Cherry
Mr. and Mrs. Phillip A. Daniel
Albert and Vera Chrone
Philip and Mary Danley, Jr.
Anthony and Patricia Cilluffo
John Danstrom
Wayne Citrin and Deborah Arhelger
Beverly Dashevsky
Brenda Clagett
Arlene Davis
Carol C. Clark, Ph.D.
Jeffrey and Louise Davis
Aaron and Wendy Clayton
Kenneth Davis
Marlynn Clayton
Michael Davis
Mary Jane and Carleton Cleveland
Mr. and Mrs. Monty Davis
Jean Clovis
Ellen R. De Carr
Elizabeth K. Cochran
Dr. Conrad De Fiebre
Dr. William Coggshall
Phyllis V. DeCinces
Norman Cohan
Willard and Gail DeFilipps
Dayl Cohen
Mr. and Mrs. Anthony Del Gatto
Michael and Eileen Cohen
Roberta B. Denning
Gerard Cole, Jr.
Deborah DePace
Kenneth Coleman
Anthony DePaolo
Maureen Coleman
Melissa Derfler
Debra M. Collins
Dolores A. Devine
Josephine Collins
Brett DeWolfe
Allan Cooper
Jerry Diamondstein
26
Patricia and Daniel Ellis
Paul Ellis
David M. Dines M.D., P.C.
Samuel and Maryann Ellsworth
Vincent T. Dipatre, Jr.
James A. Emanuele
Aida S. Dishman
Kathryn Ernst
Michael and Barbara Ditzian
Mr. and Mrs. Steven Errera
Thomas Doenitz
Mr. and Mrs. Jeffrey M. Ettinger
Kathleen and Eamonn Dolan
David Evans
Neil Doppelt and Audrey Adams
Uzi and Anat Evron
Barry Dorf
Mr. and Mrs. Terry Eward
Peter J. Dorn
Dr. Stanley and Charlotte Fahn
Dorothy Dornstein
Fernando U. Fajardo
Tammy Dougherty
Sal and Dolores Falciglia
Christine A. Doyle
Joan E. Faro
Irene Dranow Blaymore
Norma M. Faul and Family
Mr. and Mrs. David A. Dray
Burt and Noelle Faure
Chris and Jill Drury
Leonard and Gloria Fazio
Luke and Ulana Dubas
Bruce Feffer
Jay Dunlap
Dr. Daniel Feinberg
Roger C. Dunn
Richard Field
Scott Eads
David and Linda Fink
Leah Eaton
Catherine Fischer
Mark Edie
Mr. and Mrs. John J. Fleps
Loralee Edlund
Joseph H. Flom
Melissa Egbert Sheehan
Dr. Ann E. Fordham
G. Pennington Egbert III
Anthony Forgione
Mrs. George P. Egbert, Jr.
Mr. and Mrs. Alan J. Forman
Adele Eger
Cathy Forsberg
David and Jane Eger
Dr. and Mrs. Brian Forst
Ronald A. Eger
Jack Fortinsky
Soral Eglowstein
Dr. Craig and Blake Foster
Roberta Ehre
Mr. and Mrs. Thomas D. Fowler
Frances Ehrlich
Laura Fox
Heather Eilering
Dr. Robert and Carla Fox
Charlotte Einstein
Jonathan Franzen
PDF Annual Report 2010
Mr. and Mrs. Stuart Fraser
Dr. Thomas R. Goldsmith
Lois Gwinn
Wanda Hizer
Barbara Fremont
Jerome Goldstein
Anna Ho
Dr. Anne Fribourg
Mr. and Mrs. Benjamin Gomez
Donald and Marilyn Hail,
Lynn and Anne Baker, and
Hughes Machinery Co.
Lois Fried, David and Ethyl
Fried, Michael Fried, Ken
Fried, and Barbara
and Jim Weese
Dr. Robert R. Goodman
George Hoberg
Alyce C. Halchak
Ian Hodgson
Hon. Roy Goodman
John and Athena Halkias
Monty Hoeflein
Alan L. Gordon
Jeffrey Hamer
Elizabeth and Marvin Hoekstra
William C. Friend
Stephen Gorny
Norma Hammond
Philip and Mary Hogan
Elizabeth B. Friou
William Haney
Terence Hogan
Russell Furtick
Peter John Goulandris and Dr.
Karen E. Burke
Stephen and Margot Holland
Mr. and Mrs. Thomas G. Grace,
Jr.
Beverly H. Hardegree
Dr. Joseph G. Gackenbach
and Family
J. Alan and Karen Harding
Karen Holmes
Sarah Belk Gambrell
Stephen L. Graessle
Dr. Parameswaran Hariharan
Alexander Holtzman
Barry Ganz
Joan Graham
Gilbert Haroche
Sandy and Bruce Horn
Alan and Marion Garfield
Frances Granlund
Nancy Harold
Mr. and Mrs. Richard Hornstein
Diane Garrett
Dr. Michael and Dena Granof
Steven G. Harper, M.D.
Elliot Horowitz
Mr. and Mrs. Daniel Gersen
Mr. and Mrs. Eugene Grant
William H. Harrison
Margaret C. Houlding
Michael Geschwer
Mr. and Mrs. James R. Gray
Benjamin and Doris Harwell
Timothy P. Hubartt
Anthony Giambrone
Mr. and Mrs. Alan C. Greenberg
Diane Harwood
Deborah and Alan Huber
B. J. and Howard Greenberger
Glenn and Sharon Hawkins
G.S. Beckwith Gilbert
Sherwin Greenwald
Jimmie and Kurt Hayek
Helen Hudgens
Robert M. Gilhooley
Gordon Gregoretti
Marc Hayes
Seth Huhnerkoch
Christopher Gillock
Mr. and Ms. Nicholas P. Greville
Dr. John and Peggy Heilman
Raymond Hull
Anthony and Susan Gilroy
Mr. and Mrs. John Scott Griffin
Jean Kenna Heins
Dr. Nancy J. Huntsman
Robert and Gail Ginsberg
Andrea Grillini
Mr. and Mrs. Lewis Helfstein
Amanda Hirsh and Bret Hirsh
Mark and Beth Ginzinger
Pete and Emily Gross
Troy D. Henry
Dr. Sonia W. Hyman
Catherine Giordano
Sharon Grossman
Michael W. Herlihy
Dr. and Mrs. Chakri Inampudi
Richard W. Giuliani
Lori E. Groves
Margaret S. Herold
Ralph and Barbara Italie
Betty and Max Glass
Leonard and Jennifer
Gruenberg
B. Lynn Herrington
Joanne Jackson
Mr. and Mrs. Stuart Hersch
William and Judith Jackson
Marvin and Renee Herskowitz
Randi S. Jacobs
Henry G. Herzing
Scott Jacobs
Steven and Sherry C. Hibshman
Selwyn and Marjorie Jacobs
William and Mary Hicks
A. Donald Janezic, Jr.
Richard L. Hildbold
Mr. and Mrs. Arthur P. Jentoft
Mr. and Mrs. Lane M. Hill
Donald and Marian Johnson
Marjorie and William Hill
David and Carolyn Jones
Isabel Glass
Carol Glickenhaus
Morton and Claire Goetz
Nancy Gold
Michael and Anne Golden
Alvin Goldman
Amy Goldman
David Goldman
James and Sarah Goldman
Steven Goldman
Stephanie Goldman-Pittel
and Andrew Pittel
Nicole D. Guidara
William and Ruth Gulick
Geoffrey and Sarah Gund
Sharyn L. Gunderson
Arlen R. Gunner
Shelly Guo
Gene Gurkoff
Jon and Stevi Gurkoff
Andrew Gustin
Lydia Gustin
Mark Guzzi
Sara Hill
Nathaniel and Judith Jones
June Hiltabrand
Eleanor N. Jordan
Nancy E. Hinckley
James E. Jordon
Robert and Sheryl Josephson
DONORS
Gerald Z. Gibian
Harold and Pamela Huberfeld
27
DONORS
Individuals
Timothy Kacmar
Athena Kokkinakis
So Young Lee
Larry and Janis J. Malone
Leslie Kahn
Isobel R. Konecky
Suzanne M. Leggett
Ellen H. Manian
Sherrie Kaiser
Mr. and Mrs. William Konecky
Mark and Gaby R. Lehrer
Leo S. Maniatty
Beryl Kammerer
Kristijan Kordic
Thomas Lehrer
Brad Manuilow
Andrew Kampf
Mr. and Mrs. Lew Kornberg
Mike Lein
Mr. and Mrs. Patrick Maraghy
Daniel and Susan Kane
William F. Korth
Jill Leinbach
Benjamin and Kristina Marchant
Patrick Kane
Marcia and Walter Kortschak
Laurie Leiner and Morton Katz
Dr. Karen Marder
Mr. and Mrs. Robert Kantor
Janet P. Kramer
Walter F. Leinhardt
Adam Margolis
Ellyn Kaplan
Rebecca Kramer
Renee Lerner and Family
M. Margolis
Henry Kaplan
Mr. and Mrs. Jeffrey Kransdorf
Sally W. Leung
Sidney and Phyllis Margolis
Gary M. Karlitz
David and Susan Kraus
Dr. Ilan and Dr. Barbara Levi
Linda Markeloff
George Karnoutsos
Seymour Kreshek
Dina L. Levin
Rebecca Markley
Richard and Jane Karp
James Kress
Francine and Irwin Levine
Dr. Philip A. Marraccini
Karoly Kasza
Judie Stern Kreston
Jerome and Arlene Levine
Theresa L. Marran
Michael Kaufman
Midge Kretchmer
John and Catherine Liguori
Suzanne Kavetas
Mark B. Kristof and Beth V. Ward
Ruth V. Lilley
Sheryl R. Martin and
Anton Schermer
Paul Kebabian
Gloria Kronenberg
Betsy Lim
Christopher Keber
Michael Kronenberg
Keryn Limmer
Mr. and Mrs. David C. Kell
Mr. and Mrs. Rhett Krulla
Mr. and Mrs. William M. Linden
Dr. David L. Keller
Howard and Gail Kunreuther
Mr. and Mrs. William A. Lindstaedt
Elaine P. Kend
Diane L. Kurtz
Edward and Sylvia Linhares
Arthur and Nancy Kesselhaut
Barbara Kyse
Richard Linhart
Mary and Franklin Kilgore
Leonard La Manna
Cara Lipshie
Mr. and Mrs. Scott Kilrea
Rutherford C. Lake,III
Mr. Daniel and Mrs. Mary Littley
Thomas King
Lawrence Lam
William Lockeretz
John Kirrane
Cecelia Lance
Marshall Loeb
Dr. and Mrs. Francis I. Kittredge
Alan and Linda Landis
Robert M. Lofberg
Mary Kiyonaga
Robert F. Landy
Mr. and Mrs. Robert Long
Michael and Cynthia
McConnell
Joyce Klein
Mark Lane
Jean Lovett
A. Bliss McCrum, Jr.
Stephen E. Klein
Don and April Lange
W. Wilson Lowery, Jr.
Pollie McFarland
Suzanne and Robert Klein
Mr. and Mrs. Manuel
Larramendi
Dina Lowy
Charles McGeown
Gary M. Kleingartner
George and Priscilla Matouk
Mr. and Mrs. William Mattson
Diane Matusiak
J. Robb and Susan Mayo
Alexander and Marianna McAfee
Randall T. McCallum
Charles and Anita McCarthy
Mary B. McCaskey
John and Helen McGrath
Austin J. McGreal
Joanne C. MacCallum
Gordon McLean
John Macdonald
Michael McLinden
Gene G. Leary
George R. Mahoney, Jr.
and Linda L. Mahoney
John and Molly McMahon
Pauline M. Lecomte
William Makinen
Jin Lee
Mr. and Mrs. Burton C. Mallory
George and Evie Evers Kling
Sarah Le Sueur
Dr. David L. Klionsky and
Eva Youshock
Jeffery R. Leake
28
Yvonne L. Mason
Toni Lyerly
Dr. and Mrs. Timothy Larson
Robet O. Laven
Edgar and Eileen Koerner
Mary Ann and Dale Masher
Chris P. Lucas
Mr. and Mrs. Edward
Kleinschmidt
Elaine Koenigsberg
David J. Marx
John P. McMichael
W. McMillin
PDF Annual Report 2010
Malcolm McNeil
Kip Morgan
James Orsini
Dana C. Puddy
Angus McPhie
Audrey Morris
Neal Ortenberg
Kerry Pyrch
Michael McPhie
Dr. Charles Morris
Debra Osburne
William Rabbe
Mrs. Peter M. McVey
Robert Morrissey
Mila A. Ostin
Jeffrey Rabinowitz
Jane Meeker
Jeffrey W. Moses, M.D.
Don Oswald
Thomas P. Racobaldo
Dana R. Meeks
Paul V. Mrugacz
W. Matt and Amelia Ralls
David Melillo
Diane M. Mueller
Mr. and Mrs. Robert Paglia
and Family
Michael Melnick
Mr. and Mrs. Matthew Mueller
Merle D. Melvin
Mr. and Mrs. Michael Murphy
Dr. Robert Mencher
Kenneth Musen
Mark and Karen Mihalik
Jean Myers
Jeanette Y. Mihaly
Gary Nabedian
Michael and Kristin Reed
Shirley Perez
Lucy J. Reinheimer
Virginia W. Peters
Ralph and Barbara Reis
Sondra Reisinger
James and Alison Neisloss
E. Margie Peterson, Lucile
Smith, and Mr. and
Mrs. J. D. Houghton
Dr. and Mrs. Dennis P. Nelson
Mr. and Mrs. Frank A. Petitti
Llewelyn Rentel
June Newmark
James Philbin, III
Farley Rentschler
Agnes E. Nixon
Donna Pickett
The Revoir Family
Marla E. Nock
Colin G. Pitt
Anthony and M. Allison
Richards
Edward J. Noha
Nina Platt
Robert S. Northington
William Platt
Mr. and Mrs. Michael A.
Riddick
Sabato Noto
Gary Podell
Mr. and Mrs. Robert Riefstahl
Allan Novak
Eugene A. Poel
Sandra L. Rigopoulos
Mr. and Mrs. Eugene A. Nowell
Drs. John and Susan Pollack
Evan Rigterink
Mr. and Mrs. Lawrence C.
Nussdorf
William and Carol Pollak
Chariti Rimington
Martin and Valerie Pollner
William F. Ringier
Charles O'Connor
Mr. and Mrs. Henry A. Pope, Jr.
Janette Rising
Debra Oden
Louisa and Henry Porter
Ralph N. Robbins, D.D.S.
Ruth Ofstedal
Joseph Portman
Brenda G. Roberts
Kathleen O'Grady
Arjun Prabhu
Dawn Roberts
Marion Oliva
Mr. and Mrs. Jeffrey D. Roberts
Donald Olson
Daisy Prince and
Hugh Chisholm
John and Marnie Olson
Frederick Prince
Mr. and Mrs. Timothy Onders
Gail and Ephraim Propp
Luke O'Neil
Lawrence and Sandra Puckett
Gary M. Nath
Mr. and Mrs. Doug Millar
Paul and Marcy Nathan
Dr. David Miller
Sunil Nayar
Deborah Miller
and G. Timothy Black
Marty Nealon
George P. Mitchell
Thomas Mollison
John P. Molloy, Sr.
Donna Mondani
Mr. and Mrs. Joseph
Monteleone
Christopher Montgomery
William J. Montgoris
Don and Linda Moore
Mr. and Mrs. George E. Moore
Nancy A. Moore
Mr. and Mrs. Robert E. Moore
Dr. and Mrs. Donald E. Morel
Howard and Ginger Morgan
Samuel Rensin
Thomas and Brenda Roberts
Mr. and Mrs. Eric S. Robinson
Andrew and Harriet Rockefeller
Raymond Rodgers
DONORS
Jan M. Montgomery
Ronald Rashid
Glenn Penny
Milton and Cheryl Mill
Deanna L. Mitchell
Jacqueline M. Paul
Cheryl Rapp
Terrie L. Ray
Sarita Narson
Richard and Lois Miller
Alan Patricof
John Raphael
William S. Penick
Carl and Wanda Nafzger
Phyllis W. Miller
Lou Passman
Debra Raskin and
Michael Young
Robert and Gail Milhous
Michael Miller
M. Parsons
Gerald and Barbara Ranzal
Cathy Raphael
Melba Pearlstein, Esq.
James R. Milford
Joseph H. Miller
Tony Pallagrosi
29
DONORS
Individuals
Robert J. Rokose
Burke L. Schloss
Julie Silva
Guenter Stolzenberger
Robert and Heddie Romanoff
Marriane Schnell
Paul Silverman
Scott Strickland
Gregory and Barbara Romero
Jay and Suzette Schochet
Mr. and Mrs. Mark K. Silverstein
The Romero Family
Linda Schoenhals
Zach Simard
Ms. Christianna L. Strohbeck
and Dr. Ramaswamy Murari
John Rosecky
Susan Schoppman
Joseph M. Simonet
Mark Rosen
Dr. Thomas J. and Jean
Schreiber
J. Robert and Linda Sims
Mr. and Mrs. Edward
Rosenblum
Carol Rosensweig and Charlene
D. Grant
Lyn Rosensweig
Melvin S. Rosenthal
Mr. and Mrs. David Rosinus
Dr. Harley A. Rotbart
Stanley Roth, Jr.
Mr. and Mrs. Steven Rourke
Dr. and Mrs. Lewis P. Rowland
Drs. Stephen and Marie Rozan
Antonio Ruiz
Paul Ruiz
Natalie Rule
Ken W. Ryder
Alice M. Saari
Steven B. Sadler
Mr. and Mrs. Albert Safer
Betsy B. Salinger
Saul M. Salka
Harold Salmanowitz
Dr. and Mrs. Henry D. Salter, III
Pat Santoro
Hellyn L. Sarek
Mr. and Mrs. Ron Sargent
John and Deborah Scanlon
Shelley and Blair Schrum
David M. Schuld
Edward F. Schuler
Brian and Kathy Schultz
Sue Schultz
Howard and Phyllis Schwartz
Jeff and Iris Schwartz
Marie D. Schwartz
Martin Schwartz
Nancy S. Schwartz
Stephanie R. Schwartz
Mrs. Frederick E. Schwarzmann
Thelma J. Scott
Ethel Seife
Mark and Laurie Seruya
Vincent D. Sexton, Jr.
Emily Eileen Shanks
Leslie Shapiro
Ronald and Evelyn Shapiro
Theodore and Joanna Shapiro
Felice K. Shea
Mr. and Mrs. Sidney J. Sheinberg
Dr. Sam Shelanski
David H. Shelton
Debbie J. Shepherd
Cindy Sherman
Mr. and Mrs. Robert A.
Schaefer, Jr.
Jack and Paula Sherman
William S. Scherman
Dr. and Mrs. Thomas Shiftan
Dr. and Mrs. Neil Schiff
Michael Shrimmer
Susan Schindler
Beverly K. Shulman
Dr. Gregory and Patricia Schlegel
Rose L. Shure
Carole Schlessinger
Arthur and Dr. Sandra Siler
30
Philip S. Sirianni, Jr.
Samuel J. Sirota
Arline B. Slepoy
Catherine Slivinske
Dr. and Mrs. Bernard E. Small
Shirley Small
James Smith
Kathryn Smith
Laurel E. Johnson-Smith
Susan S. Smith
Wallace and Bobbie Snipes
Mr. and Mrs. Marcellus Snow
B. Robert and Mary A. Snyder
Hon. Jay T. Snyder
Mr. and Mrs. Paul W. Snyder, Jr.
Phyllis Sonnega
Douglas Spaniol
Ruth R. Spoerri
Matt and Barbara Stanek
Mr. and Mrs. Steven Starker
Alice M. Starr
Lindsey Strubhar
Laura Sudar
Arthur Suekoff
Charles and Vivian Sukenik
Dr. Judith Sulzberger
Ram K. Sundaram
Rebecca C. Swan
James and June Swartz
Phil Sweet
Edward Swenson
Kevin V. Symmons
Laura J. Taff
Jonathan Tait
Mr. and Mrs. Jim Talmage
Terri Tarin
Carol and Melvin Taub
George Tavlarios
Mary Elizabeth Taylor
Louis Teitelman and Family
David Tepper
Anne Ternes
Matthew Terry
The Liro-Hill Family
Roger and Marianne Staubach
Mr. and Mrs. William
S. Thompson
Carol Stegink
Mr. and Mrs. David Timony
Joanna T. Steichen
Zane G. Todd
Mr. and Mrs. Douglas Stern
Rhonda Tomashefsky
Jonathan and Sydney Stern
Jodie and Brian Tunis
Mark and Elle Stern
Dr. Richard and Gail Ullman
Sandra and Evan Stern
Johanna M. Utrecht
Sy and Laurie Sternberg
Russell and Whitney Van Nuis
Mary Steyer and David Conway
Dean Vanderwarker
Jennifer and David Stockman
Meredith Vanderwarker
Paul and Gayle Stoffel
Benjamin and Deborah Varat
Susannah Stoltz
PDF Annual Report 2010
Craig Varrelman
Norman Wilcox
Mr. and Mrs. Jeffrey Varsa
Jeffrey and Lise Wilks
Yvonne Vasicek
Kenneth and Kimberly Williams
Marshall Vass
Wendy Williams
Richard N. Vaughan
James W. Williamson
Lucy Venable
Mr. and Mrs. George E. Willis
Marina Viardo
Belinda Windsor
Edward M. Vietor
Audrey Winthrop
Joseph M. Volk
Ann Wolfe
Jules and Florine Wachter
Fred and Mary Woodlief
Doris C. Wages
James C. Woods
Karen Waisath
Joe and Virginia Woods
Mr. and Mrs. Alan S.
Waldenberg
Terry and Karen Wright
Dan Walsh
Audrey Warfield
Bridget Weaver
Elizabeth Weber
Evelene Wechsler
Audrey and John Wee
James M. Weichert
Kenneth and Susan Weil
Jeffery L. Weiner
Jon and Jill Weiner
Elizabeth Weinraub
Dr. Arthur and Natalia Weinreb
Andrew Weinrich
Herbert and Judith Weintraub
Mr. and Ms. Bernard W. Weiser
Dr. James Weiss
Marvin Weitz
H. Frederick Wessler
Richard Westbrook
Delores E. Westphal
Lawrence E. White
Mary Wiebke
M. R. Wiegandt
Mr. and Mrs. Craig Wierda
William Wynd
Jerome and Selma Yaguda
Jeffrey Yost
Susan and Nathan Yost
Barbara Youderian
Jeanne Young
Peter M. Young
Gordon M. Younger
Pat Younts
Jed and Brenda Zachs
James D. Zankel
Sam Zaro
Judy Zendell
Louis Zimmerman
Cynthia Zirinsky
Donald and Lynn Zucker
Susan Zwick
DONORS
Joe Welch
Wayne Wu
31
DONORS
Foundations/Corporations/Organizations
3 4 Fighting Parkinson's
Broadridge
A. G. Foundation
Brookhill Planning, LLC
Abbott Laboratories
Brown Charitable Foundation
Advantage Testing, Inc.
Budwitz and Meyerjack, P.C.
Kenneth Aidekman Family
Foundation
Mabel Burchard Fischer Grant
Foundation
Airtex Design Group, Inc.
Burgundy Foundation, Inc.
The Shana Alexander
Charitable Foundation
Cagney Insurance Network, Inc.
Allstate Giving Campaign
The Allyn Foundation, Inc.
America's Charities
Amicus Therapeutics
Gigi Arledge Foundation
ASR Electric Contractors
Campbell, Inc
Canata Family Foundation
The Carefree Foundation
Cars Helping America, LLC
Cassady, Schiller and Associates, Inc.
Castle Harlan, Inc.
AT+T United Way
James and Nancy Casty
Charitable Foundation
The Atmos Foundation
Lee S. Casty Philanthropic Fund
Automatic Data Processing, Inc.
Ronald G. Casty Family
Foundation
Don Ayres Pontiac
Bana Electric Corp
The Bane Foundation
Bank of America
Barclays Capital Charitable
Giving
Barish Family Foundation
Alvin H. Baum Family Fund
Berner Charitable and Scholarship
Foundation
Bernstein Foundation, Inc.
The Mary Duke Biddle Foundation
Biotechnology Industry Organization
Bisgeier Family Foundation
Page and William Black Foundation
Edna Williams Curl and Myron R. Curl Fisher Landau Center for Art
Endowment for Parkinson's
Focus On A Cure
Customized Energy Solutions
Forest Family Foundation
Daffy's
The Fremont Foundation
Dana and Jesse Lehman Foundation
GE Foundation
Davis Phinney Foundation
General Electric Co.
DCH Montclair LLC D/B/A Montclair
Gerson and Gerson, Inc.
Acura
Gilmon Holdings, Inc.
Defense Web Technologies, Inc.
Deloitte and Touche
Give With Liberty
Deloitte Consulting
GivingExpress Program From
American Express
Deutsche Bank Americas Foundation
Diamantine Family Foundation, Inc.
Ruth and Jack Glantz Family
Foundation Inc.
Harriet Ford Dickenson Foundation
Glickenhaus Foundation
Discover Financial Services
Edward and Marjorie Goldberger
Foundation
The Dopkin-Singer-Dannenberg
Foundation, Inc.
Dorf Associates
Dreiseszun Family Foundation
Goldman Sachs Gives
Jerome and Molly Goldstein
Philanthropic Fund
Cedar Grove Lutheran Church
The DuBose Family Foundation
The Samuel and Grace Gorlitz
Foundation
Cemex, Inc.
Ralph J. Duffie, Inc.
Lee Gottlieb Fund, Inc.
Ceregene, Inc.
Dyson Foundation
Gottwald Foundation
Charlotte Pipe and Foundry
Company
Echlin Foundation
El Paso Corporation
The Tom and Bonnie Grace
Family Foundation
Elias Charitable Foundation
Grand Council Cryptic Masons
Elija Holdings, Inc.
Eugene and Emily Grant
Foundation
The Chase Fund, Inc.
Citigroup
Louis and Virginia Clemente
Foundation, Inc.
Elmwood Charity Fund, Inc.
Coca-Cola Enterprises, Inc.
Empire State CDC: The 504
Company
The Betsy and Alan Cohn Foundation,
Inc.
Encana Oil and Gas (USA), Inc.
The George E. Coleman Jr. Foundation Epic Systems Corporation
Simon and Eve Colin Foundation, Inc. Ernst Foundation, Inc.
Greenberger Family Fund of
the Jewish Communal Fund
The Gwendolyn Halsey-Albertson
Foundation
George W. Harris Foundation
The Harte Auto Group
ExxonMobil Foundation
Hauser Family Foundation, Inc.
The David H. and Mary B. Blair
Charitable Fund
Columbia University Neurological
Institute
Fairchild Martindale Foundation
Barbara Fatt Costikyan Fund
Leona M. and Harry B. Helmsley
Foundation, Inc.
Bloomberg L.P.
Karn Couzens and Associates, Inc.
Arthur and Eve Fastenberg
Philanthropic Fund
Jonathan C.S. Cox Family Foundation
FBC Holdings, Inc.
Homestead Foundation, Inc.
The Cox Family Foundation
Fercat Holdings, Inc.
Hon Family Fund
CSX Corporation
Firstgiving, Inc.
Hope for a Cure Foundation
Boehringer Ingelheim
Pharmaceuticals, Inc.
Bonner Family Private Foundation, Inc.
Boucher Charitable Foundation
32
Philip M. Hogan Family Fund
PDF Annual Report 2010
Syde Hurdus Foundation, Inc.
Kajima Building and Design
Sheila And Milton Hyman
Foundation
The Kandell Fund
Elizabeth Knight Cochran Fund
of The Greater Cincinnati
Foundation
Jerome A. Kaplan and Deena L.
Kaplan Family Foundation, Inc.
The Knippenberg Foundation
Ipsen
Fred Kassner Family Foundation
The Kohn-Claar Family
Foundation
Isermann Family Foundation
Kastle Greens Corp.
J. B. J. Construction Corp
The Max and Rose Katz
Foundation, Inc.
I Do Foundation
Eli Lilly and Company
Foundation, Inc.
Litterman Family Foundation
Litwin Foundation, Inc.
Lawrence Livermore National
Laboratory
The Kortschak Family
Foundation
Loeb and Loeb LLP
The Kosher Nosh
Lovinger Family Foundation
Harry L. Kavetas Family Fund
Lady's Secret Foundation
Lowenstein Sandler PC
The Kellogg Collection, Inc.
Legatus Foundation
The Janus Foundation
Kelly Family Foundation
Mace / Mechanical
Contractors, Inc.
William Lehrer Charitable Fund
Johnson and Johnson Family
of Companies
Kinetics Foundation
The Leonida Family Foundation
Kings Point Drama Club
A. L. Levine Family Foundation,
Inc.
Jaffee Foundation
Joel and Carol Jankowsky
Foundation
Jordan Family Foundation
Dr. Rudolph and Mildred
Joseph Foundation
Sam W. Klein Charitable
Foundation
JP Morgan and Co.
The Max D. and Cecelia Knell
Family Foundation
Just Give
Kniffin Family Foundation
The Leon Levine Foundation
MAERSK, Inc.
Ann S. and Albert L. Maltz
Foundation
Matich Corporation
William and Nancy Lifland Fund
Mazur, Carp, Rubin and
Schulman, P.C.
Light of Day Foundation, Inc.
The McGraw-Hill Companies
THE JAMES PARKINSON LEGACY SOCIETY
We thank the following members of the James Parkinson Legacy Society
who have included PDF in their estate plans or have established
a charitable gift annuity with us.
Harold F. Jaeger
Annette Korn
Viola B. Marshall
Edith Perman-Allen
Marie D. Schwartz
Stephanie and Bernard
Schwartz
Mr. and Mrs. Robert
W. Smith
Charles L. Thomas
Lucy Veneble
M. R. Weigardt
James B. Wittrock
If you have made estate plans which include PDF or wish to establish
a charitable gift annuity which provides you with income for life, please
contact Eddie Pelto, Director of Development at (800) 457-6676.
DONORS
Gertrude S. Bell
Roger M. Bowman
Aila G. Dawe
Jean Dewdney
Guy Estes
Elizabeth A. Geiser
Matilda Goodman
33
DONORS
Foundations/Corporations/Organizations
McKinstry Charitable
Foundation
Meadors Charitable Fund
Medtronic, Inc.
The Parkinson Alliance, Inc.
Parkinson's Unity Walk, Inc.
Hyman and Bessie Passman
Family Charitable Foundation, Inc.
MGM Plans, Inc.
PBM Products
Microsoft Giving Campaign
The Phillies
Midwest Electric Horology
Chapter 125 of the NAWCC
Play For Your Cause
Irma and Arthur Miller
Foundation
The Shubert Organization, Inc.
The David C. And Jeannie Price
Fund
Mount Sinai Hospital
The Ron Shapiro Charitable
Foundation
The Portmann Family Charitable
Fund
Walter J. Minton Foundation
Motorola Foundation
Leslie C. and Leonard A.
Shapiro Family Foundation, Inc.
Alexander Shashaty Family
Foundation
Powmat, Ltd.
Morgan Stanley
Arnold and Marie Schwartz
Fund
The Bernard Plotkin Fund
The Harvey L. Miller Family
Foundation
The Mirapaul Foundation
The Jean and Thomas Schreiber
Philanthropic Fund
R. A. Novia and Associates, LLC
R. C. Bigelow, Inc.
The Donald Reich Family
Charitable Fund
Frank and Domna Stanton
Foundation, Inc.
The Robbins Family Foundation
STAR Sharing Time and Resources
The Andrew and Lisa Rodman
Foundation
Jerome Stevens Pharmaceuticals, Inc.
New York Times, Inc.
North Bergen Federation of
Teachers
Novartis Federal Credit Union
Novartis Pharmaceuticals Corp
O.H. Local
The Calvin Flavia Oak
Foundation, Inc.
Thomas P. and Patricia A.
O'Donnell Foundation
Orange County Community
Foundation
Wasily Family Foundation
Wechsler Foundation
Weeds, Inc.
Roll Giving
Eli and Mae Rosen Foundation
The Dorothy Strelsin Foundation
Joseph Rosen Foundation
The Sulzberger Foundation, Inc.
The Benjamin M. Rosen Family
Foundation
Summit Construction Co., Inc.
Wellpoint Associate Giving
Campaign
Support Claim Services, Inc.
Westchester Hills Golf Club
The Irene Herbert Ross and
Harper Grant Ross Foundation
SVM Foundation
WithumSmith + Brown
Sy Syms Foundation
John Wojtowicz, Inc.
Symantec
Mary and George H.
Zimmerman Foundation
Royal Neighbors of America
Leon Rubach Family Foundation
Dianne H. Ruthman Family
Foundation
S and S Realty
SAD Foundation
Safter Properties
Edmond J. Safra Foundation
Sanky Communications, Inc.
Overture Films
Schering-Plough Corporation
34
United Refining Company
John W. and Laura S. Stewart
Foundation
Richard and Harriet Orkand
Charitable Fund
P. E. C. United Charities, Inc.
The Ullmann Family Foundation
Wachovia
Retired Public Employees
Association of California
New England Brokerage
Company
UCB, Inc.
Vorst Family Foundation
Re-Steel Supply Co., Inc.
The Netter Foundation, Inc.
U.M.R. Foundation
Vision Equities, LLC
Muze, Inc.
Thomas Neal Foundation, Inc.
The Trukenbrod Family
Foundation
Spiegel Foundation
Mutual Of America
National Sound Industries, Inc.
Toshiba America Information
Systems, Inc.
United Steelworkers
Siegel, O'Connor, O'Donnell and Beck, United Technologies
P. C.
The Yaspan Unterberg
Skadden, Arps, Slate, Meagher and
Foundation, Inc.
Flom LLP
The Ellen M. Violett and Mary
Benjamin Solomon
P.R. Thomas Foundation
Solvay Information Technologies, Inc. Visa Givingstation
The Spurlino Foundation
Isidore C. Myers-Joseph A.
Erickson Properties, Inc.
The Foundation - To Life, Inc.
Alexandra and Martin Symonds
Foundation., Inc.
Henry and Marilyn Taub Foundation
Joseph and Arlene Taub Foundation
Judy and Warren Tenney Foundation
Teva Neuroscience, Inc.
Three Swallows Foundation
Tides Foundation
TJM Investments
Weiden Schwartz Fischler
Family Foundation
J. Weinstein Foundation Inc.
Zoe's Best Friend, Inc.
PDF Annual Report 2010
Estates
Trusts
Josephine Albrecht
L. Millard Richmon
Frances Antopol
Anne J. Schaff
Cyrile Baylos
Elizabeth Scott
Thelma Becker
Helen Sisko
Adele S. Blank
Harry H. Spiegel
Elizabeth Kellogg Crouch
Emerson M. Wallace
Vera Gauthier Didier
Irene Wiley
Dorothy M. Booth Charitable
Trust
Nelson C. Doland, Jr.
Carla U. Wilkinson
Edith Reichman Trust
Mary M. Dubois
Alfreda Lorraine Young
Margaret Dutton
Edward Zotter
Elizabeth "Betty" J. Rasmussen
Revocable Trust
Adele Blank Charitable Lead
Trust
Reva H. Newman Irrevocable
Trust
Adolph Kutner Inter Vivos Trust
Ruth M. Kroon Trust
Blanche Sussman Trust
Sophia Tomich Living Trust
Dorcile R. Fowler Trust
The Henry W. Chambers Jr.
Charitable Lead Unitrust
Dorothy E. Bradford Trust
George S. Flemister
Elizabeth Butterworth Trust
Louise C. Fruehling
Esther Ruddick Trust
Abraham Gross
Esther Wright Trust
Henrietta H. Hart
Frances Marie Smith Revocable
Living Trust
Marie D. Hayes
Frances Hirsch
Gladys Field Charitable Lead
Annuity Trust
Dorothy Bauer Jochem
Gladys Hyman Trust
Jane and Leslie Katz
George J. Chute Living Trust
Anthony Klempa
Hal Headley Trust
Marie Langlois
Henry A. Morris and Marian C.
Morris Revocable Living Trust
Frank D. Lenig
Edward Leshowitz
Jean Lewis
Florence N. Lifland
Mary Helen Linder
Barbara L. Louis
J. Bert Jones Trust
Jane E. Kerbey Trust
Joseph M. and Eva M. Perasso
2000 Trust
Roger Mahey
Lester W. Stevenson, Jr. Trust
Ashok Malhotra
Lucille D. Sloan Trust
Paul Edwin Melcher
Mae C. Clegg Trust
Faith E. Messick
Margaret D. Lienemann
Charitable Trust
Mary C. Holman Trust
Eleanor Newman
Minow 1999 Charitable Lead
Trust
Daniel F. North
Miriam C. Goldman Trust
Gregory Peters
Paul J. Hillman Insurance
Remainder
Richard G. Prins
Anne S. Rennie
Raymond W. Carlin Family Trust
DONORS
Kniffin Charitable Remainder
Trust
Marga Moore
William J. O'Brien Trust
Hudson Charitable Trust
Virginia N. Lowry
Lucille L. Miller
The Melba M. O'Connell Trust
35
PEOPLE
Board of Directors
Scientific Advisory Committee
Officers
J. Timothy Greenamyre, M.D., Ph.D.
Oleh Hornykiewicz, M.D.
J. William Langston, M.D.
G. Frederick Wooten, M.D.
Anne B. Young, M.D., Ph.D.
Page Morton Black
Chairman
Lewis P. Rowland, M.D.
President
Timothy A. Pedley, M.D.
Vice President
Stephen Ackerman
Treasurer
Isobel Robins Konecky
Secretary
Stanley Fahn, M.D.
Scientific Director
Directors
Constance Woodruff Atwell, Ph.D.
Karen Elizabeth Burke, M.D., Ph.D.
Margo Catsimatidis
Barbara Costikyan
Peter Dorn
George Pennington Egbert III
Stephen B. Flood, Esq.
Sarah Belk Gambrell
Daniel Gersen, Esq.
Stephanie Goldman-Pittel
Arlene Levine
Marshall Loeb
Howard DeWitt Morgan
Marie D. Schwartz
Domna Stanton, Ph.D.
Sandra Feagan Stern, Ed.D.
Melvin S. Taub
Martin Tuchman
People with Parkinson's
Advisory Council
Carey Christensen
Joy Dryfoos
David Eger, Ph.D., Co-Chair
Melinda Hermanns, Ph.D.
Rhona Johnson
Daniel Kiefer, J.D.
Jo-Anne Lazarus, Ph.D.
Meredith Mucha, M.D.
Michael O'Leary
Lillian Snyder*
Joanna Steichen, M.S.W.*
Bruce Talbot*
Ann Wasson, Co-Chair
* deceased
Executive Director
Robin Anthony Elliott
The quilts included in this publication were created by people living with Parkinson’s
disease for the Parkinson’s Quilt and are part of PDF’s Creativity and Parkinson’s Project.
This initiative seeks to explore, support and encourage the possible
therapeutic value of creativity in Parkinson’s disease.
Quilt Credits:
Cover Lois Gwinn; Page 2 Lois Gwinn; Page 4 Carolyn Weimer; Page 6 Joan Engel;
Page 10 Portuguese PD Association; Page 14 Julia Huestis;
Page 18 Lynne Stefanetti; Page 20 Lisa Longacher;
Inside Back Cover (left to right) Lois Gwinn; Carolyn Weimer; Joan Engel;
Portuguese PD Association; Julia Huestis; Lynne Stefanetti; Lisa Longacher
Image Credits:
Page 6 Modified from Matsuda et al. Journal of Neuroscience, 2009; Page 7 Mark R. Sullivan;
Page 14 Courtesy of Dr. Scott Small; Page 20 Janet Charles;
Page 21 Patrick McMullan Company (top); Pete Philomey, PpP Photography (bottom)
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© 2011 Parkinson’s Disease Foundation
(800) 457-6676 | [email protected] | www.pdf.org