the September 2015 Newsletter

P
The
September 2015
Friends of Parkinson’s
Volume 2 Issue 9
arkinson Post
Living Well with Parkinson’s ~ An Integrative Approach
Parkinson's & Altzheimer's
A Heart-Warming Tale of Two People in Love
Don't Quit
The
Unsung Warriors
Parkinson's Quiz
Magic Bank Account
Friends of Parkinson’s • September 2015 • Page 1
The Parkinson Post
Message From
FRIENDS OF PARKINSON’S
Subscribe or Donate Today (page 8)
DON’T QUIT
When things go wrong, as they sometimes will,
When the road you’re trudging seems all uphill,
When the funds are low and the debts are high,
And you want to smile, but you have to sigh,
When care is pressing you down a bit,
Rest if you must, but don’t you quit.
Life is bizarre with its twists and turns,
As everyone of us sometimes learns,
And many a fellow turns about
When he might have won had he stuck it out.
Don’t give up though the pace seems slow,
You may succeed with another blow.
Often the goal is nearer than it seems
To a faint and faltering man;
Often the struggler has given up
When he might have captured the victor’s cup;
And he learned too late when the night came down,
How close he was to the golden crown.
Success is failure turned inside out,
The silver tint of the clouds of doubt,
And you never can tell how close you are,
It may be near when it seems far;
So stick to the fight when you’re hardest hit
It’s when things seem worse that you mustn’t quit.
Author Unknown
Publisher
Friends of Parkinson’s
Website
FriendsofParkinsons.org
Executive Director
Jamillah Ali-Rahman
Staff Writers
Lisa Vanderburg
Editor
Michelene K. Bell
Contributing Writers
Leslie Davidsonl
Int’l Research Specialist
Lisa Vanderburg
Advisory Board
Donna Jensen
Dir. of Operations
Frank Fuentes
Dir. Marketing & Pub. Relations
Lanie Spradlin
Dir. Community Affairs
Tina Drago
Dir. Medical Services
Jim DiFiore
Dir. Business Development
Charles Jensen
Legal Advisor
Shirley Hofmeister
Dir. Emeritus
Distribution Manager
Jon Carl Olson
Advertising
725-222-8181
Office
The Parkinson Post
2400 N. Tenaya Way
Las Vegas, NV 89128
Ph: 725-222-8181
Fx: 702-838-2640
E-mail
[email protected]
Page 2 • September 2015 • Friends of Parkinson’s
Inside this issue
Message From Friends of Parkinson's
Don't Quit - Author Unknown
Page 2
Carers [caregivers]
The Unsung Warriors
By Lisa Vanderburg
Page 3
Parkinson's & Alzheimer's
By Leslie Davidson
Pages 4 & 5
Pondering Life
• The Magic Bank Account
• The Parkinson's Quiz
Page 6
Events & Resources
Page 7
Friends of Parkinson’s - Membership
Message from Executive Director
Page 8
Parkinson's & Alzheimer's
Featured story
A heart-warming tale of two people in love
Leslie Davidson
Don’t forget the Sock Hop!
Save this Date: October 24, 2015
The Parkinson Post
C
arers
T
aming the Beast Within
We know how this journey will end, cure aside.
This is it, for both you and me…it might be huge
and terrifying as the beastie in the wardrobe, but
it’s still not in our control.
L
ike a dog circling to settle, I find the greatest calm and solace to
begin is through the written word. I love language. In school I
studied Latin and just for a little levity before we begin, here’s a
favourite phrase: "Si hoc signum legere potes, operis boni in rebus
Latinus alacribus et fructuosis potiri potes!" Which translates to:
“If you can read this sign, you can get a good job in the fast-paced, highpaying world of Latin!”
Now, I’m set. Shall we begin?
Πάσχω is the Ancient Greek origin that means pathos; sympathy, empathy,
sorrows for someone else’s suffering.
We, as carers [caregivers], have a certain Πάσχω for those who suffer. It is
our passions; our strong emotional responses to help loved ones who suffer
from debilitating illnesses. In many instances, life may seem unfair and no
one understands that more than the caregiver. Passion is what being a carer
[caregiver] is all about.
Let me tell you, it isn’t easy being in the field of “caregiving;” particularly
when you’ve reached a breaking point and feel as though you have nothing
more to give. There comes a time you feel unappreciated, overworked and
underpaid; yet, you keep going. Why? I believe, in most cases, it’s really
simple; the choice you made comes from love.
Do you realize how rare and precious that makes you? When you find
your body is spent, your mind alternating between over-revving and fog,
your soul exhausted and you feel like you can’t continue…STOP! Take a
moment to be KIND to YOU, because you need to do that. Treat yourself
with the same respect and love you treat others. Your loved one or ‘charge’
will not suffer one iota more for you taking that minute.
I’m a Christian, and I fully admit that the last stopping place for me in
the maelstrom is the Lord – what’s with that? For me, ‘be still and know
that I am God’ is just shortened in those times to my mantra, "Be still. Be
quiet, Breathe…"
Another great outlet for the weary is laughter. My PD husband and I have
been together for 37 years and raised two fine boys, now married and
living on a different continent. We are blessed! But no relationship of any
duration is free of strife. He’s now into his 16th year with this particular
alien invasion of Parkinson’s, and as you know, it’s a little different for
everyone. For him, sleep is the most gruelling time, and that will have a
knock-on [knock-out] effect in daytime hours. Being that he’s got maybe
10 inches and 100lb. on me, manoeuvres can be difficult. Yet, even in the
the
…
[caregivers]
Unsung Warriors
midst of his Bradykinesia, we’ll find ourselves shlapplakking (at least
that’s what his Dutch parents used to call it – uncontrollable laughter) at
the sublime and ridiculous ministering of me trying to help him get his
clothes on or off a chair. He also had profound RBD (REM Behavioural
Disorder), which means he can get up, brush his teeth, eat, etc. all while
he’s asleep – fun! Because he left the gas hob [knob] on once and buttered
a ball of string to eat, I now tend to follow him around during these spells;
talking to him gently like he was a child. My first phrase would be, ‘look at
me’ – trying to gauge if he’s really awake or asleep. That mile-long bleary
stare tells me he’s asleep. ‘Hey, hon.…it’s 2 am. Do you know that?’ I’d
ask. ‘Yup…’ he’d say, ‘time for coffee!’ he’d add with great gusto. Then I’d
try to coax him back to bed. Getting him in and out of the car? A comedy
of errors! We laugh when we can; we cry when it’s just too much.
Don’t get me wrong; it’s serious caring for someone with a degenerative
disease. Personally, what kills me is when my dude’s going through one of
his PLMD (Periodic Limb Movement Disorder) spells. These spasms last
for a few days, and every minute of the night can be sheer hell to watch,
much less have. We’ve tried everything; but to no avail. It is most difficult
to see him in the throes of violent agony which culminate in massive legkicks that radiates from his back like a whiplash every six or so seconds.
It’s like watching someone tasered over and over again. He can’t sleep,
can’t stop, and the only momentary relief is when I can get him up on his
feet for a few tightly held seconds of rest. It’s the only thing that can control
the leg-kicks — his own body weight. However, it’s a precarious perch I
can only keep up for a while. Then I will pray amidst the rage of my mind,
body and soul, at this ruinous, savage road of Parkinson’s. And I’ll say to
myself and Him upstairs, ‘come on! You wouldn’t let a dog suffer so….’
Therefore we stand, holding on for dear life. I also stand convicted of my
own ‘take him or break him’ bargaining which, during these moments of
despair, I’ve offered up an ill-fitting sacrifice of my beloved. Once the spell
is spent by utter exhaustion, a void of shame and nothingness leaves me
numb. It’s brutal, undermining and deeply unsettling.
We also know how this journey will end, cure aside. We just don’t entertain
the idea; it serves no purpose but to make life harder. You know that old
adage, ‘don’t sweat the small stuff…’? This is it, for both you and me…it
might be huge and terrifying as the beastie in the wardrobe, but it’s still not
in our control. So, drop it. Because that puppy will drain you dry.
You don’t have to put a ‘brave-face’ on all the time – that’s far too much to
ask. Yes, some people will not get it. They’ll brazenly (in a naïve but sweet
intent) gravitate towards your caree [charge] – not you! Sometimes, that
hurts like the dickens, but hell – claim the moment for you!
For me, caring is baby-steps. One foot in front of the other, then the other
foot…and don’t look at what you cannot control. Yes, it’s tough and hard
and gruelling at times. And you have to learn when you need a break. Bless
you for what you do. And do. And continue to do. You are LOVED…even
when you don’t think so. Oh, and don’t forget to hydrate!
Lisa describes herself as a ‘chaotic and vaguely
confused pit-bull’ who would ‘cheerfully throttle
Parkinson’s Disease’ if she could! She is a European
writer and the carer [caregiver] for her husband Pete,
who she sees as a ‘shameless, wanton optimist’ – she
knows what a blessing that is! She has now joined
us as the International Research Manager and Staff
Writer for Friends of Parkinson’s.
Friends of Parkinson’s • September 2015 • Page 3
The Parkinson Post
Parkinson's
M
y
husband
[Lincoln]
has
Alzheimer’s. At least we think he
does, though we cannot peer into
his brain to see if the telltale tangles
of errant proteins are present. But
we are losing him, our daughters and I, we are
losing him to a disease that steals his
memory, erodes his reason, and
silences his voice.
My
father
died
of
Alzheimer’s and so did my
father-in-law…good, smart,
hardworking men whom we
loved.
A
“Dad, you are home,” I told him.
But the familiar room, with its books, including the two he had written,
the paintings he and mother collected over their 60 years together, and the
family photos, was no longer a haven of peace and comfort.
I thought his disorientation was due to his inability to connect the externals
of his environment.
My father-in-law would pour over tiny photographs mounted in leatherbound booklets tied with fraying laces. These moments, from a life almost
70 years gone, before the war, before Canada, before kids, seemed to hold
more meaning than his wife, his son and daughter, or even our two girls,
his only grandchildren and the light of his life…no longer.
He would point to a sepia street scene, brick row houses with front
steps leading down to cobblestones, and would whisper to himself
“Oppenshaw” in his soft Lancashire speech. He could not have told
you his own name.
I wonder if our fathers were trying to tell us, not so much that they couldn’t
make sense of what they were seeing, rather they could no longer make
sense of what they were feeling and needed to find something to cling to,
something that meant “It’s okay. I know this. I’m home.”
I know my husband struggles that way, sometimes. “I am all mixed up,”
he says.
Our dads were both in their early 80’s when their symptoms presented
themselves. Lincoln was 66 years old when he first started experiencing
episodes of confusion in the middle of the night. I look back and see the
signs. What could we have done differently had we known?
We had settled into a retirement in which we were fulfilling the promises
made when we were young…promises to always welcome adventure
into our lives and never hold each other back. So Lincoln climbed Mt.
Kilimanjaro and then rode his bike from Paris to Istanbul. We walked
across England from the Irish Sea to the North Sea. I plunked myself down
in front of the computer and wrote and wrote and wrote.
Page 4 • September 2015 • Friends of Parkinson’s
By Leslie Davidson
Together we picked up the travelling life we
had willingly abandoned 30 years before, a
life we had exchanged for the joys of living
and raising our children in a little town ringed
by mountains and beribboned by two perfect
rivers.
A heart-warming tale of two people in love
“I want to go home,” my father would say.
'
& lzheimer s
Once again we loaded the
Volkswagen camper and
headed out, with no clear
plan and no timeline.
Several winters in a row we
wandered to the southern tip
of the Baja peninsula and up
the windswept, eastern cape.
We free camped in palm-sheltered bays, paddling our kayak to the sound
of dolphins and the cranky bark of seal colonies. We rocked in a small
wooden boat while grey whale mommas and their babies slipped and rolled
around us.
We puttered up and down the west coast of Canada and the US, clambering
down cliffs to reach isolated beaches, finding humility among giant redwoods
and Douglas firs. We hiked the slick rock canyons of Colorado and Utah,
sat in solitude beside lakeshore campfires, and traced the shorelines of tiny,
mountain-ringed lakes in British Columbia’s stunning Chilcotin country. We
poked about in northern rainforests where eagles filled the sky in numbers too
large to count and made plans to return and perhaps visit the Yukon and Alaska.
Then life slid sideways. I developed a tremor in my left hand and
arm. It only occurred when I was using it or extending it. However,
according to Dr. Google, not Parkinson’s disease. I breathed a sigh
of relief. My husband’s sister had recently died of complications of
Young-onset Parkinson’s.
My left leg began to drag. My left arm did not swing when I walked. I
started to stumble. My shoulders became excruciatingly painful. Exhaustion
plagued my days and sleeplessness my nights.
My GP ordered a scan of my brain. He thought maybe I’d had a stroke.
I was hoping for a nice little benign tumour; one that could safely be
removed from my brain and my life would return to normal. You know you
are in trouble when you find yourself wishing for a growth of riotous cells,
a-bloom among the neurons. The scan results came back negative.
I waited to see a neurologist who, after a series of physical tests, told me
I had Parkinson’s disease. What? Dr. Google is not always right? The
medication prescribed helped somewhat. That was the good news and the
bad. You see, if the medication mitigates symptoms, a Parkinson’s disease
diagnosis is confirmed.
My first waking thought the morning after my diagnosis? “I want to go
home.” I think instantly of my dad, and of Lincoln’s.
Home. Not a physical place but one of being, a sanctuary of the self, inhabited
by confidence and hope, in which the world, or at least one’s own small
corner of it, makes sense. In an imagined future of walkers and wheelchairs,
The Parkinson Post
Parkinson's & Alzheimer's
We are all bound together in ways that can
be invisible to the eye; that there is a oneness
to humanity; that we achieve ourselves by
sharing ourselves with others, and caring for
those around us.”
“…
a frozen gait, a frozen face and a Swiss cheese brain, there is little hope and
no confidence.
And just when I think I am doing really well, feeling at home within this
new reality, Lincoln begins to be confused about who I am.
Despair can become familiar territory; however, it is not a groove I want
worn into my brain. And so, because I am loved and a lucky woman, I
learn, in time, to be grateful once again for the abundant joy in my life, the
staunchness of our friends and extended family, a good man by my side,
and strong, compassionate young women our daughters have grown to be.
I go adventuring inside my head, on the computer screen, in my notebooks,
finding inspiration in memory, in a wonderful book, in a chance remark, or a
trick of the light on a late winter’s evening.
“Do you have a twin?” he asks me. “You look like my wife.”
And now it is Lincoln’s turn. Denial can hold the truth at bay for only so long.
Lincoln’s night time confusion, panicked awakenings…distressing dreams,
critters in the bed, strangers in the house and our new car flummoxes him
seem all too real. Our closest friends express concern. His doctor prescribes
medication. Lincoln tries. He tries so hard. The pills leave him depressed for
the first time in his life and make him physically ill. And, no one can assure
us that, in the end, the pills will make one bit of difference.
We make a choice to be as open about Lincoln’s illness as we had been
about mine, to not close ourselves off or pretend all is right in our
world. I know it will be hard news for people to hear. And we are,
amongst almost everyone we know, mourning the loss of a beloved
friend…one of a small group of outdoor-loving men, including Lincoln,
which we call the “Lost Boys”. There is now, for me, such poignant
irony in the name.
I stumble sideways and he catches me in his arms and turns it into a
clumsy waltz. I dump my first glass of wine and burst into tears. The
second glass spills and this time I laugh and wonder aloud if I can’t pour
it, should I be drinking it?
I tell him how I enjoy the hallucinated “others” in our house, the benign
strangers who appear in the daytime in Lincoln’s vision. They never want a
meal or leave the toilet seat up. He sets extra places at the table and makes
them tea. He waits for them to catch up when we hike. Oh, you would have
to know him to see the humour in that.
This is one of the oft-repeated stories of my life: Lincoln, miles ahead on
a cross-country ski or hiking trail, finally thinks that maybe he should stop
and wait for me. I puff up to him, exhausted, a little annoyed.
“Great. You’re here!” he says, as he readjusts his pack and immediately
strides off.
Those of us who have hiked, skied or biked with him shake our heads at
the attentiveness paid these new companions. But they become part of our
lives; I find myself asking them to watch over him, over us.
We make a new acquaintance by chance or fate. He is a talented
sculptor of wood and stone, a storyteller, a kind, strong man whose
world is as naturally inhabited by spirits as our little town is by gardenmarauding, white-tail deer. Lincoln’s hallucinations are nothing out
of the ordinary to him. He sees them as blessings and tells me the old
ones he sees around my husband enjoy his company very much. This
helps enormously.
“Who was that who hopped into my bed last night?”
Then, with such kindness, he peers into my face. “Why are you crying?”
Our girls live in a pretty little mountain town five hours away. They have
both found admirable young men with whom to share their lives. And there
are grandbabies, two of them, beautiful little boys, one for each family. We
have bought a small apartment there…a grandchild one block this way,
another two blocks that a way. My brain tells me this is perfect.
We are in the middle of our first long visit in the new place, a month over
Christmas. There is a lot of snow in the valley, and not much sun, but the
town is beautiful and everyone we have met has been kind and welcoming.
We go so easily, so happily between the kids’ houses and our apartment and
I am grateful for this time. I know a permanent move here makes sense, for
so many reasons, the biggest of which is the opportunity to be part of our
grandchildren’s lives. However, my heart cannot call this home. Not yet.
An e-mail from a dear friend writes: “… we’ll all continue to be connected
by the invisible threads that bind us, even after you move. We are all bound
together in ways that can be invisible to the eye; that there is a oneness to
humanity; that we achieve ourselves by sharing ourselves with others, and
caring for those around us.”
These words come at the right moment, on a day when I am weary, when
nightmare thinking threatens to undermine my sense of joy-no-matterwhat. I struggle to put into words why this means so much to me, when
displacement seems the theme of our present and future lives. This is where
I will find a home, a sanctuary and refuge from the ghouls of despair…
this connection to those we love, those we like, and even those we find
impossible to understand. If the day comes when Lincoln or I lose the
ability to know who loves us or whom we love, I know there will be some
gentle soul who remembers for us, who feels for us even if we cannot
feel for ourselves. They will wipe the drool and, because I’ve made them
promise, pluck a few wayward facial hairs. They will hold our hands and
share their stories…and please, there must be laughter.
In the meantime, I awake to a morning that holds the first bright sun in
weeks. I fill the little camera I bought with picture after picture. Golden
light spills slowly over mountain tops and I stand, coffee mug in hand,
shivering on a balcony that gives view to a beauty I cannot attempt to
describe. Lincoln joins me.
“I need a better camera,” I say.
“Why?” he says. “It’s all right here."
Attitude
is everything
Friends of Parkinson’s • September 2015 • Page 5
Pondering Life
The
The Magic
Bank
Account
Parkinson's Quiz
How much do you know?
Q: Parkinson's disease is only seen in people
of advanced age.
o True or o False
Q: What does the body's nervous system
control?
A. The Five Senses
B. Body weight
C. Body Temperture
D. All of the above
Author Unknown
ACTUALLY, This GAME is REAL! It was found in
the billfold of Coach Paul 'Bear' Bryant, Alabama
after he died in 1982.
Shocked? YES!
Imagine that you had won the following
*PRIZE* in a contest: Each morning your bank
would deposit $86,400 in your private account for
your use. However, this prize has rules.
Each of us is already a winner of this *PRIZE*. We
just cannot seem to see it.
The PRIZE is *TIME*
The set of rules
1.Each morning we awaken to receive 86,400
seconds as a gift of life.
1.Everything you did not spend during each day
would be taken away from you.
2.When we go to sleep at night, any remaining
time is not credited to us.
2.You may not simply transfer money into some
other account.
3.What we have not used up that day is forever lost.
3.You may only spend it.
4.Each morning upon awakening, the bank opens
your account with another $86,400 for that day.
5.The bank can end the game without warning; at
any time it can say,” Game Over!”. It can close
the account and you will not receive a new one.
What would you personally do?
You would buy anything and everything you wanted
right? Not only for yourself, but also for all the
people you love and care for. Even for people you
do not know, because you could not possibly spend
it all on yourself, right?
You would try to spend every penny, and use it all,
because you knew it would be replenished in the
morning…right?
Q: What causes Parkinson's disease?
A. A severe blood infection
B. Loss of the brain chemical dopamine
C. Stroke
D. Depression
Q: There are no laboratory tests to diagnose
Parkinson's disease.
o True or o False
Q: There are __stages of Parkinson's disease.
A. 2; B. 4; C. 5; D. 7
Q:What are Lewy bodies?
A. Protein deposits found in the brain
B. Pockets of air found in the brain
C. Microscopic crystalline matter in the brain
D. A build-up of salt found in the brain
For all questions, answers & scores, visit:
http://www.medicinenet.com/parkinsons_
disease_quiz/quiz_result.htm
4.Yesterday is forever gone.
5.Each morning the account is refilled, but the
bank can dissolve your account at any time
WITHOUT WARNING.
SO, what will YOU do with your 86,400 seconds?
Those seconds are worth so much more than the
same amount in dollars. Think about it and remember
to enjoy every second of your life, because time
races by so much quicker than you think.
So take care of you, be happy, love deeply and
enjoy life!
Here’s wishing you a wonderful and beautiful day.
Start “spending”....
DON’T COMPLAIN ABOUT GROWING OLD.
SOME PEOPLE DO NOT GET THE PRIVILEGE!
Page 6 • September 2015 • Friends of Parkinson’s
I'd like to live my life in
such a manner that
I could sell my pet
parrot to the town
gossi p.
By Eleanor Holden
(contributions by teachers,
students and their parents)
Events & Resources
September
TAI CHI FOR BALANCE, Mondays & Wednesdays,
11am. W. Flamingo Active Adult Cntr. 6255 W,
Flamingo. 702-455-7742.
MOVE I EXERCISE CLASSES, Tuesdays &
Thursdays, 11:15am to 12:15pm, (seated exercise
for anyone with neurodengerative disorders) Lou
Ruvo Center for Brain Health. 888 W. Bonneville,
call Lakita Arrington. 702-483-6032.
MOVE II EXERCISE CLASSES, Tuesdays &
Thursdays, 12:30pm to 1:30pm, (standing
exercise for anyone with neurodengerative
disorders) Lou Ruvo Center for Brain Health.
888 W. Bonneville, contact Lakita Arrington.
702-483-6032. ($10 drop in price).
ZUMBA GOLD, Wednesdays, 9-10am. 2651 Paseo
Verde Pkwy, Suite 180. Contact Kim Riddle, 702616-4902. ($5/per session or 5 sessions for $20).
AGELESS WOMAN WORKOUT, Tuesdays &
Thursdays, 9-10am. 2651 Paseo Verde Pkwy,
Suite 180. Contact Kim Riddle, 702-616-4902.
($5/per session or 5 sessions for $20).
GENTLE YOGA, Tuesdays & Thursdays, 10-11am.
2651 Paseo Verde Pkwy, Suite 180. Contact
Kim Riddle, 702-616-4902. ($5/per session or 5
sessions for $20).
AEROBIC FUN EXERCISE CLASSES, Mondays,
Wednesdays & Fridays, 9:30am. Fern Adair
Conservatory of the Arts, 3265 E. Patrick Lane.
TAI CHI FOR BALANCE, Fridays, 9-10am.
Desert Breeze Community Center, 8275 Spring
Mountain, Road. LV. 702-455-8334. Facilitator
Tamalyn Taylor MS.
Dance for Parkinson's, Wednesdays, 12:301:30pm Las Ventanas (open to the public).
YOUNG ONSET PD SUPPORT GROUP of Southern
Nevada, Cidney Donahoo, 702-326-6831.
[email protected].
DBS SUPPORT GROUP of Southern Nevada, Kip
Smith, 702-755-5704. [email protected].
CAREGIVERS SUPPORT,
• 2nd Friday, 10am, H2U Mountain View Office,
3100 N. Tenaya Way, Suite 114. Call 702-3814141 for info.
PEOPLE WITH PARKINSON’S,
• 4th Tuesday, @1:30pm. H2U Mountain View
Office, 3150 North Tenaya Way, Suite 114. 702381-4141.
HEALTHSOUTH DESERT CANYON HOSPITAL,
The Parkinson’s Disease Rehabilitation Program provides a full range of rehabilitative
services aimed at meeting the global range of
medical, psychological and functional needs of
Parkinson’s patients. 9175 W. Oquendo Rd., Las
Vegas. For additional information please call
702-252-7342.
SPECIAL ANNOUNCEMENT &
INVITATION
IF YOU HAVE AN EVENT OR SUPPORT
GROUP REGARDING PARKINSON’S
Please Submit Via E-mail To:
[email protected]
(subject Line, Calendar)
Veteran Support, Veteran Involve Parkinson
(VIP), 1pm (1st Tuesday) Location TBD. Call
for details 702-381-4141.
This invitation to submit events and/or
support group information for those with
Parkinson’s, will be doing a great service for
the Parkinson community and those
who may not know of such services. If you
know of a loved one or friends with
PD, please get involved.
Thank you for your time and support.
PEOPLE WITH PARKINSON’S,
• 1st Saturday, 9am. Mountain View Hospital,
3100 N. Tenaya Way, First floor. 702-381-4141.
Make this day special and then
pay-it-forward!
• 3rd Tuesday, 1:30pm,Vida Training Center, 1875
E. Sahara Ave., Suite 430. Call 702-381-4141.
Location: The Elks Lodge, 4100
West Charleston Blvd, LV
Friends of Parkinson’s • September 2015 • Page 7
G Friends of Parkinson's Membership G
New Member/Renewal
What You Get
Membership Benefits
• Open Forum and Group Discussions
• Support groups relating to needs of the members
Medical Symposium
•Annually held to bring the community the
latest and most relevant Parkinson medicines,
treatments and information
Special Events – Parkinson’s Awareness
• Meet and Greet
• Annual Walk
• Pancakes for Parkinson’s
• Putting for Parkinson’s
• Caregiver’s Collage
Face’s of Parkinson’s
• Portraits of the Parkinson’s
o Annual
DATE:__________________ (required)
o New Member
Parkinson Aware and Care Kit
•Help with planning your steps to better care.
•Contains information to help plan for any needs
that may arise
o Renewal
NAME _________________________________________
ADDRESS _____________________________________
CITY __________________________________________
STATE _________; ZIP _________ PLEASE PRINT
______________________________________________
HOME PHONE
______________________________________________
CELL PHONE
o Male o Female Date of Birth: ____________
MARITAL STATUS
o Single
o Married
o Widowed
Parkinson Post Newsletter
•Monthly E-newsletter and Quarterly mailed
newsletter Parkinson disease related articles,
information and activities for the community
Health to You
• Free Health Screenings
• Social Activities
• Discount Travel Services
• Health Educational Programs
o Monthly
2015 Friends Campaign
_________________________________________EMAIL
Fitness Classes
• Dance with PD, yoga, Tai Chi
Type of Membership
Active
o $100.00 o $10.00
Membership Certificate + Membership Card
Associate
$150.00
o $15.00
Membership Certificate + 2-Membership Cards
Charter
o $250.00
o $25.00
•Individual, Organization or Company must be an
Active Member
•Membership Certificate, Plaque & 2-Membership
cards
Application Fee (Non-Refundable) $ 25.00
Total$________
o
Payment Options:
Friends of Parkinson’s accepts all major credit
cards. Please complete the credit card information
listed below.
Method of Payment:
o Check o VISA o M/C o AMEX o DISC
________________________________________
Card Number
Expiration Date: ________; CCV: ________
2015 Friends Campaign
_____________________________________
Name on Card
Jamillah Ali-Rahman
EXECUTIVE DIRECTOR
“To all our long-time friends and supporters, we thank you for being there when we needed your help. Friends of
Parkinson’s is a unique community of people who have something in common. Their challenges of leading a “normal”
life can and does take a toll.
As many know, we are working hard to provide you with options, opportunities and services to help improve your lifestyle.
Please know, in order for us to continue providing services and care to the Parkinson’s community, we need your help. In
order for us to continue providing the "Parkinson Post" Newsletter to you, please support "Friends of Parkinson's" by
purchasing a one-year subscription to the "Parkinson Post" Newsletter for only $20.15; mailed quarterly. We want to make
sure those who do not use the computer or have access to the computer will be able to stay in touch with the Parkinson
community. This Newsletter is an invaluable tool as it connects the Parkinson’s and local communities. It is filled with
inspiring stories, information and the latest news about Parkinson’s.
Please check out our other memberships as well; Active Membership, $100 per year; Associate Membership $150 per year and the Charter Membership
$250 per year. Invite your friends to join us in our endeavors to make the world a better place.
Since we started the 2015 Friends Campaign on June 1, I must say it is helping with the printing, the Newsletter and distribution costs.
Do come by the office at 2400 North Tenaya Way, Monday through Friday 10am to 3pm for more information about who we are and what is coming up
next. Would love to see you.”
The Parkinson Post Newsletter © • All rights reserved • [email protected] • Design by Michelene K. Bell
Page 8 • September 2015 • Friends of Parkinson’s