Burn Support Magazine

Transcription

Phoenix Burn Support M
Burn Support Magazine
Issue 3 2014
Magical Healing
Experienced at
Phoenix WBC
Lasers and Burn Scars:
An Exciting New Era in
Burn Reconstruction | 11
Exploring Mind-Body
Practices to Complement
Traditional Healthcare | 12
Self-Compassion:
What It Is,
How It Can Help | 18
2
Magical Healing Experienced
at Phoenix WBC in Anaheim
By Kathryn Edwards
In the shadow of Disneyland’s magic kingdom, participants
at the 26th annual Phoenix World Burn Congress
experienced the magical healing that occurs when burn
survivors come together to share their stories.
The largest Phoenix World Burn Congress to date, this
year’s event drew 1,038 survivors, their loved ones,
health care professionals, and firefighters to Anaheim,
California. In addition to the main program for adults,
Phoenix WBC again included a Phoenix UBelong
workshop for children under the age of 18, a young adult
workshop for those 18-25 years old, and a workshop for
parents who are burn survivors or have children who
survived a burn injury (see story, p. 5).
Beginning With a Time for Reflection
On the evening of October 22, a record number of
attendees joined members of the fire service and Phoenix
WBC volunteers for the annual Walk of Remembrance,
an event prior to the official kickoff that has become a
Phoenix World Burn Congress tradition.
“Today we are honoring those who we have lost and the
losses we have all experienced collectively from the impact
of fire and burns,” explained Phoenix Society Executive
Director Amy Acton. The solemn, but powerful, event
gave participants an opportunity for reflection before
the official opening ceremonies the following morning.
However, it also concluded with a message of hope.
Upon completing the walk from the Hilton Anaheim
to the city’s convention center, participants learned
that the Phoenix Society for Burn Survivors would be
joining Project Paradigm, a private foundation, and the
American Red Cross in launching a national effort to
prevent burn injuries and deaths from home fires. The
inaugural Paradigm Youth Challenge will inspire youth to
take an active role to work collaboratively to address this
important social problem.
Amy urged those present to add their voices to this
national effort and to engage the youth in their
communities to help find innovative ways to reduce the
number of Americans losing their lives in home fires each
day. “Our belief,” she said, “is that if we actively engage
our youth today we will live in a safer world tomorrow.”
Choosing “Aliveness” Over “Woundedness”
Opening the first session at the Congress, Justina Page
talked about the many ways a burn injury creates a
change in plans. “I wasn’t planning on being a burn
survivor. It just happened,” she said.
Justina shared the story of how she was burned and
lost one of her 22-month old twins in a house fire. She
experienced some dark days, but found a way to recover
and reconnect with life. She went on to become a peer
support volunteer at the hospital and an advocate for fire
sprinkler systems. She created a nonprofit organization
named after the son she lost. The Amos House of Faith
provides support for children and families who have
experienced burn trauma. She encouraged the audience
to “use every difficult change in your life as a stepping
stone to success.”
Mark Nepo, cancer survivor, philosopher, and poet,
spoke about the journey of inner transformation in his
keynote address. The word “vulnerable,” he said, means
“to carry a wound gracefully.” We’ve all done that, he
remarked. “Some crisis or loss comes to undo us until
we are broken open.”
Speaking of his experience with cancer, Mark shared
his belief that “sharing pain is the only way to stay alive.
We are more together than alone.” Whether from injury,
illness, or the death of a loved one, he explained, each of
us is asked to assume the courage to choose “aliveness”
over “woundedness.”
Keynote speaker Mark Nepo
“It takes courage to give up what no longer works, in
order to stay close to what is sacred,” said Mark, who
concluded by suggesting, “When you’re lost, look for the
teacher next to you in each moment.”
Phoenix Burn Support Magazine | 2 | Issue 3 2014
Robert David Hall,
accompanied by
his wife, Judith,
concludes his
presentation with
a song.
Actor Robert David Hall, best known for his role as
the coroner in the television series CSI: Crime Scene
Investigation, shared a brief version of the story of his
burn injury, then focused on gratitude and humor
as the key ingredients for healing. He expressed his
gratitude for his family, friends, and each of the nurses
who treated him in the hospital. Hall read excerpts from
a journal he kept during his recovery. The entry about
his accident is poignant, yet laced with humor: In that
moment I saw Jesus and thought he had come to take me
home. And in case you’re wondering, Jesus really does look
like Greg Allman when he was married to Cher.
Even while telling the most dramatic aspects of a severe
burn injury that resulted in amputation of both legs, the
actor kept the audience laughing and hanging on the edge of
their seats. His humorous, upbeat message demonstrated
the courageous positive attitude that helped him make a
successful recovery and rebuild his life.
“If you’re at a low ebb in your life, help someone else,” he
explained. Hall concluded his message by singing “It Just
Is,” a song about his injury that he played on his guitar
while his wife accompanied him on bass.
Finding a Sense of Community
Attendees found inspiration not only from the keynote speakers
but from the many opportunities they had in workshops,
breakout sessions, open mic, and discussion groups.
Young Adults enjoying their outing at Knott’s
Berry Farm.
a similar path. The two are an example of what has grown
the event over the course of its 26-year history. Attendees
who experience Phoenix WBC as a life-changing event
often return home eager to share their experiences and
encourage others to join them at a future Congress. Both
Laura and her friend were already making plans to share
their new insights with other burn survivors.
Laura Jacobs, from Antigua, West Indies, summed up the
feelings shared by many, saying, “I’m amazed at the love
and caring survivors show each other. When I was in the
hospital, having a visit from another survivor gave me hope.
I want to bring that hope to other people in my country.”
Patt Lindsey, who was burned as a child in 1945, was
one of the more than 450 first-time attendees. Patt also
participated in the Phoenix SOAR® training held prior to
the Congress. The Phoenix Survivors Offering Assistance
in Recovery® program provided her with the skills she will
need as a peer supporter in a hospital in Galveston, Texas.
Laura, who was attending her second “World Burn” this
year, brought another burn survivor from Antigua to
experience the magic of meeting others who’ve traveled
“Even people that aren’t burned should do things like
this,” Patt said with a smile. “Sometimes you just need to
get together and talk with people and connect. I feel I’ve
come full circle, coming back to volunteer in the hospital
where I was treated so long ago.”
Laura Borth from Weymouth, Massachusetts, attended
the young adult workshop. The thing she liked most
about this year’s conference was being around people
her own age who have had a similar experience. “It’s
interesting to hear how other people cope and what it’s
like to grow up with burns,” she said.
Becoming a Collective Story of Hope
“The purpose of our coming together is to provide
hope,” Society Executive Director Amy Acton explained
to Phoenix WBC attendees as the event concluded. “We
tell our stories, and through our stories, we learn that we
are not alone. You are part of a collective story of hope
and helping people move on with life after a burn injury.”
At the closing ceremony, yoga instructor Blake Tedder
and some of the children from UBelong demonstrated
the yoga poses they had learned throughout the week.
Blake and several young volunteers led the audience in
an activity called “balloon breath.” Each person in the
audience inhaled, then blew their troubles out into an
imaginary balloon. After three rounds of inhaling and
exhaling, the imaginary balloons, which had become
quite large, along with the troubles they held, were
simultaneously released.
The gathering ended with a triumphant drum circle led
by Upbeat Drum Circle. Participants played hand drums,
rattled shakers, and formed a spontaneous, celebratory
chorus line that snaked around the room.
As participants filed out of the event, the wife of a
burn survivor explained to the woman next to her,
“This conference helped us look at my husband’s injury
differently. It was amazing to meet so many people who
have been through something similar. It gives us hope.”
Indeed, we told our stories and through our stories we
learned that we are not alone.
Thank You
A triumphant drum circle wraps up Phoenix WBC in Anaheim.
to Our 2014 Phoenix World Burn Congress Sponsors
This year’s program was our largest ever—179 sponsoring individuals and organizations truly extended
themselves and provided the funding needing to meet this growth. Thank you for providing healing, hope,
and a connection to a national burn community!
Lead Sponsors:
Visit www.phoenix-society.org/wbc/sponsors for complete listing
Youth, Family Programming Focuses on
Connection, Support, Being Who You Are
Child- and family-specific programming again played
an important role in this year’s Phoenix World Burn
Congress. The growing popularity of these programs
quickly became evident this year when Phoenix UBelong
for kids and teens and the young adult workshop, as well
as the onsite childcare, sold out despite an increase in
capacity of 30% over previous years.
Moviemaking Sets the Scene for
Phoenix UBelong for Kids and Teens
Phoenix UBelong includes a 3-day program, held
each year in conjunction with the Phoenix World Burn
Congress, that is specifically designed for 7- to 17-yearolds who are either burn survivors themselves or who
have a sibling or parent who has experienced a burn
injury. The group started each morning this year with
yoga, breathing, stretching, and basic meditation to
provide the young participants with a calm, focused
start to each day, as well as techniques that they could
take home. They then broke into small teams to try
their hands at movie-making, using stop-gap animation,
with the help of a team from IncrediFlix, a Californiabased organization that specializes in providing kids
with hands-on film experience. The activity gave the
young participants a taste of the Hollywood scene and
encouraged teamwork among groups of peers. The older teens in the program used a walk to a nearby
Joe’s Italian Ice to practice their social skills while ordering
a delicious treat. They also spent time with young adult
mentors from the Phoenix WBC Young Adult Workshop
who shared their stories. The mentors provided the
teens with a glimpse of the challenges they may face as
they continue their journey and the support they can
look forward to in the Young Adult program.
Following their movie-making project, the group was
treated to a visit by actress Angel Parker of Disney XD’s
Lab Rats. Angel shared her tips with the kids and teens
on how she deals with attention from others (including
staring), how she remains true to her values even when
others try to challenge them, and how working hard
toward a goal can get you where you want to go.
Young Adults in UBelong Practice
Techniques, Mentor Teens
The UBelong Young Adult Workshop, with participants
ages 18-25, featured two tracks. In the first, participants
took a positive look at where they were and where they
were going in life, while building connections with one
another through sharing stories and practicing the
Phoenix Society’s Beyond Surviving: Tools for Thriving
skills. Using the Rehearse Your Responses exercises,
they were able to learn from others and to refine their
interactions into positive experiences. In the second
track, participants shared their personal stories with
the purpose of reaching out to others. Their skills were
put to use when the young adults hosted an icebreaker
table at the kickoff event, talked with the teens in the
Phoenix UBelong program about overcoming struggles
and moving forward, and addressed the entire Phoenix
WBC audience at the closing ceremonies. However,
the highlight of their time together may have been
sharing the thrills of the roller coasters at Knott’s Berry
Farm theme park as they strengthened their sense of
connection with each other.
Parent Workshop Addresses Needs
of the Family
It wasn’t only children who were able to benefit from
the Phoenix WBC family programming. An afternoon
workshop focused on the unique needs of parents
navigating burn recovery. The workshop leaders spoke
of resilience and facilitated participants’ ability to benefit
from the collective wisdom of healing and recovery that
could be found throughout the room. A panel described
their varied experiences, then the group divided into
smaller discussion groups where parents shared useful
information and tools for managing the needs of the
family after a burn injury. Therapeutic Component Introduced in
Phoenix WBC Childcare
Even the youngest Congress attendees benefited from the
wealth of expertise onsite. Phoenix UBelong volunteer
staff brought elements of therapeutic programming to
the very young children (ages 6 and under) who were
enrolled in Phoenix WBC’s onsite childcare. These
youngest participants experienced role-playing with
their handmade puppets to act out and practice social
skills as a way to talk about who they are and celebrating
their unique qualities.
Programs Provide Invaluable Take-Away
This year’s program organizers set a goal of providing
participants with extra skills, strength, and friendships
to meet the challenges they face when they return
home. Whether teen or toddler, parent or sibling, those
who participated certainly found connection with the
burn community, support to navigate recovery, and
encouragement to “be who you are.” Phoenix Burn Support Magazine | 5 | Issue 3 2014
Annual Awards Recognize Service to
Phoenix Society, Burn Community
At the recent Phoenix World Burn Congress in Anaheim, California, the recipients of three Phoenix Society awards
were recognized for their significant contributions to the Society and the greater burn community.
Karen
Badger
Breslau
Award
Karen Badger is the 2014 recipient of the Alan & Delwyn
Breslau Award, the highest distinction the Phoenix Society
can bestow. She was selected for her “enthusiastic and
visionary service” to the Phoenix Society and the burn
community, says Society President Patrick Horan. He
describes her dedication to the Phoenix Society, from
being an integral part of the Phoenix SOAR program as
it relates to the fire service to evaluating the efficiency
of Phoenix Society programs, as being “appreciated and
admired by the entire organization.”
Karen, who is a social worker with 25 years of experience,
as well as the associate dean of social work and assistant
provost of undergraduate education at the University of
Kentucky, brings the unique perspective of a researcher,
mental health provider, and administrator to her work
with the organization. On behalf of the Phoenix Society,
she has collaborated with the International Association
of Fire Fighters (IAFF) Charitable Foundation and National
Fallen Firefighters Foundation to adapt the Phoenix
SOAR® peer support program to better meet the needs
of the fire service. She has been involved in the Phoenix
World Burn Congress, developing and leading sessions,
as well as working with the Phoenix Society and the
fire service partners to expand Phoenix WBC offerings
specifically for the fire service and their families. Karen
has worked with the Phoenix Society to construct and
carry out a needs assessment after The Station nightclub
fire in Rhode Island and evaluations of programs, such
as Phoenix SOAR, Journey Back, and UBelong. She has
partnered with the Phoenix Society to present initiatives
at national conferences and other forums. Karen has
been a frequent contributor to Burn Support News (now
Phoenix Burn Support Magazine). She has also served as
a member of the Aftercare Reintegration Committee—a
joint effort of the American Burn Association (ABA) and
the Phoenix Society for Burn Survivors.
Recognizing Karen’s numerous contributions that have not
only significantly enhanced the ability of the Society to fulfill
its mission but also enhanced the greater burn community,
the Phoenix Society president thanked her for her years of
work, tireless devotion, and inspirational leadership.
Brien Dews is the recipient of the 2014 Harman Award,
presented by the Phoenix Society’s board of directors to
an individual or family, corporation, foundation or service
organization with a proven record of exceptional generosity
through direct financial support and/or volunteer effort.
Brien Dews
Harman
Award
Although Brien may describe himself as a “reluctant
participant” at his first Phoenix WBC in 2001, it wasn’t long
before he was an avid Phoenix Society supporter. In fact,
by the next year he had organized the first of what has
become an annual event, Buses by the Beach, through
which Volkswagen (and other) van enthusiasts raise
money for the Phoenix Society. Over the past 12 years,
the Michigan-based group has combined Volkswagenstyle camping with fundraising at annual gatherings that
draw enthusiasts from throughout the US and Canada.
Since its inception Buses by the Beach has raised more
than $120,000 for the Phoenix Society.
Brien has not only attended every Phoenix WBC since his
first, but has also taken on a key logistical role. He and his
van were unexpectedly pressed into service in 2004 when
help was need to get the conference shipment back to the
Phoenix Society office in Grand Rapids, Michigan, from North
Carolina. Now each year he drives the truck, transporting all
of the Phoenix Society office equipment and supplies, to the
Congress. In addition, since 2009, he has been responsible
for coordinating all the exhibitors there.
Brien also volunteers as a Phoenix advocate, a Phoenix
SOAR peer supporter, and a moderator of the Phoenix
Web-based chats. He is able to share with others his
amazing story of recovery from the plane crash in which
he sustained his burn injuries. After 6 weeks in a druginduced coma, months in therapy, and several surgeries,
especially on his right hand which took the brunt of the
burns, Brien was able to return to his profession as a
clockmaker.
In naming Brien the 2014 Harman Award recipient, the
Phoenix Society board of directors has recognized his
demonstrated outstanding volunteer and charitable
responsibility and generosity that encourages others to
take philanthropic leadership roles within the Phoenix
Society for Burn Survivors.
Dameron Hospital burn unit, Oscar got involved in the
burn community, initially through the Fire Fighters Burn
Institute (FFBI). He has volunteered nearly every year
since then for the children’s burn camp it sponsors.
Oscar
Barrera
Joe Hickey
Fire Service
Award
The Joe Hickey Fire Service Award honors a firefighter or
firefighter burn foundation who provides assistance to
burn survivors, demonstrates a commitment to improve
burn care through all phases of recovery, and works to
carry on the mission of the Society and the local burn
community. This year’s recipient is Oscar Barrera.
Oscar was a captain in the Stockton (California) Fire
Department when he was severely injured while fighting
a house fire in 1997. Shortly after his release from the
Although he looked forward to being able to spend more
time with his wife once he retired, Oscar knew he had a
calling to do something more, and his involvement with
kids in the burn community eventually led to his current
work with adult survivors.
Oscar, who continues to serve on the FFBI advisory board,
became a Phoenix SOAR peer supporter, as has his wife
Jeannine, and provides assistance whenever requested.
He also represents the IAFF on the ABA’s Aftercare
Reintegration Committee and has assisted with planning
and implementing firefighter programming for Phoenix
World Burn Congress.
Oscar was also the key influence in the development
by the FFBI of the Liaison Response Team program
in Sacramento to assist hospitals, firefighters, and
firefighter families after a line-of-duty injury occurs, and
he continues to participate in a very active way.
He is certainly following the late firefighter Joe Hickey’s
philosophy of placing the wellbeing of burn survivors,
above all, as his top priority.
Federal Fire Prevention Grant to Support Phoenix SOAR
The Federal Emergency Management Agency (FEMA)
has awarded a $269,000 grant to the Phoenix Society
for Burn Survivors. The grant will support and expand
the Phoenix SOAR® (Survivors Offering Assistance
in Recovery®) program, with particular emphasis
in increasing the access to firefighter peer support,
educational information, and resources for burninjured firefighters, their families, and everyone in the
fire service affected by burn injury.
Activities under the grant will include an outreach
and education program for the fire service and the
recruitment and training of up to 25 burn-injured
firefighters and their family members for advocacy. The
training will take place as part of the Phoenix Society’s
upcoming Phoenix World Burn Congress, which will be
held October 21-24, in Indianapolis, Indiana.
“The generous grant from FEMA will allow us to
reach thousands of fire fighters and to significantly
increase firefighter participation in the Phoenix SOAR
program,” said Phoenix Society Executive Director
Amy Acton. “We are very grateful for FEMA’s support
of this work,” she added.
Pivotal Moments
Recognizing and Embracing Life-Changing Turning Points
By James Bosch, MA, MFTi
When does someone who has experienced the horror
of a burn injury develop optimism regarding their
future? What allows someone to go from needing help
to becoming a source of help and inspiration for others?
What was your pivotal moment? This question was
posed to three burn survivors involved with the Phoenix
Society for Burn Survivors. We wanted each person to
try to identify their turning point, the moment that they
perceived the possibility of a new life after their trauma.
As you may suspect, there isn’t a single universal
timeline for reaching these “Aha!” moments. However,
in this article, you will learn how three brave individuals
experienced their pivotal moments. We hope they will
inspire those of you who are still waiting for yours, as
well as provide you with some strategies that may help
pave the way for your own journey of healing.
Despite his extreme nervousness, he headed to Phoenix
WBC in Atlanta—alone. “I wanted to see what else was
out there!” he recalls.
His big moment happened on the way to the conference
hotel. Once the firefighters had picked him up at the airport,
Tony found himself in a van full of other burn survivors.
“Here I was ninety-plus percent burned, with fingers
missing, and I shared the ride with five or six people who
were missing limbs and had all kinds of prosthetics,”
Tony says. He remembers chatting and getting to know
them during the ride.
In Webster’s Dictionary, the definition of pivotal includes
“very important; critical.” A moment is described as “a
precise point in time.” Pivotal moments are big moments
and little moments of clarity that provide us with new
perspectives and opportunities to change our lives. In
turn, this transformation puts us in a position to help
others change their lives. As you read, see if you can
think of any pivotal or defining moments in your own
life. Ask yourself if they were painful or exhilarating and
think about how they changed you.
Several Moments Can Lead to a Pivotal One
Burn survivor Tony Gonzalez recalls several important
moments that led to his “pivotal” one.
Tony had sustained burns to 95% of his body in a
propane explosion. While being treated at Loyola Burn
Center near Chicago, he was visited by Phoenix Society
founder Alan Breslau and his wife, Delwyn. The couple
were at the burn center to speak to the staff there.
Tony remembers that the Breslaus were very relaxed
as they sat and chatted with him for almost an hour.
They introduced him to the Phoenix Society, but more
importantly, they introduced him to the possibility
of a life after his devastating injury. That visit led to
Tony’s decision to attend the 1999 Phoenix World Burn
Congress—and to his primary pivotal moment.
Tony had been struggling his way through a very tough
process—re-entering the community in a wheelchair,
wearing a plastic facemask, and having virtually all of
his exposed skin in some stage of scarring and healing.
Tony Gonzalez realized at his first Phoenix WBC “if
they could do it, I could do it.”
But once they arrived at the hotel, Tony immediately went
to his room and didn’t venture out for quite a while. He
knew he should head down to the conference, but without
the protective and loving bubble of his family, he was
feeling completely overwhelmed. After grounding himself,
Tony decided to take a risk and finally go to dinner. While
sitting with another survivor who had missing limbs, he
realized that, as the evening progressed, his new friend’s
prosthetics and injuries had “disappeared.”
“These people became my heroes,” says Tony about the
survivors he met at that Phoenix WBC. “I realized that if
they could do it, I could do it.”
His next pivotal moment occurred upon his return to the
hospital—this time for a burn support group meeting.
He arrived to find only three people in attendance and
didn’t feel much of a connection to the group, but he
decided to try again—this time taking his mother. His
second experience was not any better. He felt there was
a lot of complaining, and not a lot of support. But then he
had the inspiration that led to his transformation.
“The pivotal moment for me was when I decided to stop
just sitting there and listening, and start sharing!” Tony
says. He recognized that all of the participants had a lot of
problems, but he wanted to start talking about solutions.
Tony realized that if he wanted to get something out of
the support experience, if the conversations were going
to change, he was going to have to start contributing. This
is the spirit he continues to bring to his current activities
as a Phoenix SOAR® coordinator and peer supporter at
Loyola Burn Center, and also as a community organizer,
a fundraiser, and a leader in the burn community.
If you are a burn survivor who is still struggling, Tony
wants you to remember who you were before your
injury and then to find your “new normal.”
“Things will never be exactly like they used to be,” Tony
says, “but things can be as good and different.”
“Recovery is more of an ongoing process than an event,”
he has discovered, so Tony urges those who are facing
challenges to “never give up.”
An Important Moment Can Occur Organically
Jamie Nieto also attended the support group at Loyola
Burn Center and he too reached a turning point there.
He had been a patient at the hospital after sustaining
burns to 55% of his body in a fire pit accident on the
morning of his 20th birthday. Although he credits his
mother and sister for being his “rocks” and saving his life,
it was in those support group meetings that he became
open to the potential of a life after burns.
That support group also led Jamie to travel to Baltimore,
Maryland, in 2005 for his first Phoenix World Burn
Congress. While there, he experienced a pivotal moment
that was very subtle and occurred in what seemed like
an unlikely place.
“I remember sitting around the bar talking and meeting
everyone,” Jamie says about his second night at Phoenix WBC.
“At that moment, there were no burn injuries or prosthetic
legs among us; we were all just extremely connected and
present with each other. All the scars fell away and we were
just having fun. Looking back, I see I was more connected to
the burn survivors doing a non-burn-recovery related activity.”
Jamie Nieto, seen here with sister Ramona, recalls a
subtle pivotal moment in a seemingly unlikely setting.
Jamie’s experience was not unusual. Many who are
healing from a trauma find that important moments can
come organically and in social environments.
“Don’t get me wrong, the support groups are great and
the recovery programming is amazing and so healing,”
says Jamie, “but the times I feel most connected to other
burn survivors are when we are not talking about our
burns, but just talking about life.”
After that first trip to Phoenix WBC, Jamie moved beyond
thinking “Why me?” to “Why not me?” He has become
extremely active in his hospital’s burn support group.
He is a Phoenix Society for Burn Survivors SOAR peer
supporter and, along with Tony, he raises money for
burn recovery. Jamie attributes much of his success to
support from Tony, as well as Barry Bennett, the social
worker on the unit and the drive behind their support
program.
“Surviving is the first victory,” says Jamie, and he believes
it begins the day you live through your injury. “Instead of
being victims,” he says, “we are victors.”
Jamie wants others on this journey to know that the
healing never stops. Recovery is definitely not the easiest
road to travel, he admits, but it is “doable.”
“I know it is an old cliché that what does not kill you will
make you stronger,” he says, “but indeed I am a stronger
person today than before my accident.”
Transformation Is a Process
Angie Merritt’s big pivotal moment resulted from a
meeting 25 years ago with someone who would become
her inspiration.
Angie had been the victim of a violent crime that left 75%
of her body burned. As she was recovering from these
injuries, she couldn’t imagine how she was going to reenter society. She recalls being rolled down the hall on
a hospital gurney and passing a mirror. She made the
nurse stop and go back. She remembers saying, “I want
to see that person in the mirror. I know that is not me.”
After that first look, she was terrified at the thought of
facing people again.
Then, while in a rehabilitation hospital, Angie met
Barbara Kammerer Quayle, a burn-survivor, educator,
and long-time teacher of image enhancement for
burn survivors. Barbara came to share her corrective
cosmetics techniques and social skills training with Angie.
She taught her how to use makeup to deal with the skin
discoloration caused by her burns. This simple tool gave
Angie much hope and was a turning point for her. She
enthusiastically recalls thinking that this woman was her
heroine, saying, “Her fingers were burned worse than
mine, yet she walked so proud! She was my Angelina
Jolie! I really admired her.”
Angie moved to Las Vegas shortly after that. She
continued to undergo surgeries at University Medical
Center - Las Vegas. She became a volunteer in the burn
unit, spending so much time there that she felt like an
employee. However, she realized that to further her
recovery she had to transfer that commitment to a
paying job and get back into the world.
Angie recalls initially walking with her head down
and often dreaming that the burns never happened.
But utilizing the tools she learned from her mentor,
Barbara, and thinking of herself as an actress helped
her get through. She says she decided to act the part of
someone proud and confident until she actually started
to feel that way.
“In the morning, I put on my make-up like an actress and
headed out in the world,” she say. “At night, I would take
off my makeup like removing war paint and relax, having
made it through the day and hopefully having been a
model for other struggling people.”
Today, Angie feels proud when people notice her on the
bus or in public. “I want people to see me, to see that
you can survive and be happy,” she states. “If I can make
someone happy, my work is done.”
Yes, there are still days that are difficult for her, days
when she feels down, but more often than not she is
positive. “I am happy today,” she says. “I have a home, a
job and, am blessed with a wonderful family. I have God
in my heart. What else could I ask for?”
Recently, Angie took another big step in her recovery
when she decided to volunteer as a Phoenix SOAR peer
supporter. That also led to her next transformative
moment, one that was beautifully connected to the first.
Twenty-five years after their initial meeting, Barbara
Kammerer Quayle walked in as an instructor at Angie’s
Phoenix SOAR training and much to Angie’s delight,
Barbara still remembered her. Angie was finally able to
share with Barbara what a significant impact she has had
on her life.
Now Angie can do for others what Barbara once did for
her, serve as a teacher and an inspiration. She advises
burn survivors who are struggling to have faith that it will
get better. She encourages them to hold their heads up
and take advantage of every opportunity for growth. She
cautions them not to always rely on others, but to instead
get up and do things for themselves. Most importantly,
she suggests, they should remember to laugh often.
Embracing Windows of Opportunity,
Acting on Change
By reflecting on these three inspirational stories, we
can deduce some of the basic “ingredients” that help
transformational moments occur.
The first is contact with others who share a similar
journey and who understand our story. This is the power
of peer support and programs like the Phoenix World
Burn Congress.
The second is environment. You have to get on that van,
be in that social setting, attend that support group, or
go to that make-up class. Getting there is most of the
battle—taking the leap and venturing somewhere that
frightens you or makes you hesitant is an important step.
The third is change. For some of us, the injury itself is the
thing that changes our lives for the better by forcing us to
make big changes and perhaps to look at ways in which
we were previously living in sedentary or unhealthy
ways. However, creating change often requires you to
struggle a bit on your own and take risks.
Each person’s pivotal moment will be as different as their
scars, yet by hearing one another’s stories we can find
hope. It is important to remember that there are many
struggles leading up to these Aha! moments and those
moments cannot be forced. However, by embracing
windows of opportunity and acting on change we can
live beyond our wildest dreams.
As author Elizabeth Norris so eloquently says in her
book Unbroken, “The pivotal moments in your life are
always made up of smaller pieces, things that seemed
insignificant at the time but in fact brought you to where
you needed to be.”
Tony, Jamie, and Angie definitely prove her point.
James Bosch was burn injured as an infant. He has dedicated
much of his professional life in the service of helping other burn
survivors and their families heal and find meaning after a burn.
Acceptance of new life, new body, and finding new meaning
are at the core of his work. He speaks and facilitates at burn
meetings in Canada and the United States. He is a member of
the Phoenix Society for Burn Survivors SOAR National Advisory
Committee and a consultant.
Lasers and Burn Scars
An Exciting
New Era in Burn
Reconstruction
By Pirko Maguina, MD
Five years ago three beautiful young sisters–-triplets, to
be precise—caused a stir in the burn survivor community
after they appeared on “Today” and “20/20” and shared
their courageous story with the world. As toddlers, the
Berns triplets had survived a house fire that tragically
took their mother’s life. Growing up, all three underwent
numerous reconstructive surgeries, which left them with
extensive scars throughout their bodies.
In 2008, the sisters underwent treatment for their scars
with lasers. The results surprised many—their scars had
changed dramatically. None of the scars had disappeared
but all three were overjoyed to report marked
improvement. Laser technology had evolved to make
scars flatter, softer, more elastic, and of more even color.
may result after reconstructive surgery with skin from
the scalp. Unfortunately, because they target the dark
pigment in the hair follicles, they don’t work well for
blondes or people with very light hair color.
Laser treatments are not magic. The changes take
months and while scars can improve dramatically, they
never disappear. Like all medical procedures, they can
have complications such as infections that require
antibiotics or even severe eye injuries. (We use special
protective goggles to prevent these.) It is important
to use the newest equipment as some of the older,
outdated lasers caused much more problems and didn’t
offer the benefits of the newest technology.
Fractionated lasers, such as FCO2, treat only a fraction
of the scar, “zapping” away thousands of microscopic
columns of scar tissue. The scar reacts over time by
gradually flattening and softening. Scars that are dark
tend to lose some of their pigment and in many cases
lighten up to better match the skin around them.
Our team in Sacramento has been treating burn
survivors with lasers for about 4 years now. Adults are
seen at the University of California Davis Medical Center
and children at the pediatric burn unit at Shriners
Hospital for Children—Northern California. After several
hundred treatment sessions, we are very encouraged
by this initial experience. Laser treatments are done
as outpatient procedures and typically don’t need
anesthesia, instead just numbing creams. Most patients
do need several treatments, especially if they have very
extensive scars. No, we don’t treat the whole body at
once! The results vary—sometimes we are amazed at
the marked improvement and other times we don’t see
a lot of change. We don’t know yet why some patients
respond better than others but we are hoping to find
out. It is a very inspiring time for research and the latest
equipment has brought amazing innovations!
PD lasers target the tiny blood vessels that nourish the
scars. These blood vessels are also responsible for making
some scars red and it is through them that the chemicals
responsible for itching are released. By reducing the blood
flow in the scars with the PD laser, many scars gradually
appear less red, less swollen, and less itchy.
We now have the option of improving scars (rather than
just cutting them out). Lasers are allowing us to treat
scars that are years or even decades old. My friend
and mentor Matt Donelan, MD, of Shriners Hospital for
Children—Boston has worded it best: “Scars have a right
to live and get better.”
Hair removal lasers target the dark pigment in the hair
follicles (melanin) and can reduce or sometimes even
stop hair growth. This is particularly useful for scars
that have ingrown hairs. (We mostly see them on men
who survive burns and develop ingrown hairs all over
their beards.) They also work well for unwanted hair that
We are experiencing a new era in burn reconstruction,
and it’s exciting!
Their experience was followed by other similar reports.
As a result, many medical studies were performed to
better understand the effects of lasers on burn scars.
These days, laser therapy has evolved to be a key
treatment option for burn survivors.
More than 50 different lasers are used in medicine. Of
these, 3 types have proven most useful: the fractionated
carbon dioxide laser (FCO2), the pulse dye laser (PD), and
the hair removal lasers. (There are many of the latter—
we use one called “Alexandrite.”)
Dr. Pirko Maguina is a plastic and reconstructive surgeon at
Shriners Hospitals for Children—Northern California and the
University of California Davis Medical Center.
Exploring Mind-Body
Practices to Complement
Traditional Healthcare
Many Americans, nearly 40 percent, use health care approaches developed outside of mainstream
Western, or conventional, medicine for specific conditions or overall well-being, reports the National
Institutes of Health National Center for Complementary and Alternative Medicine website. These
include mind and body practices, such as acupuncture, massage therapy, meditation, tai chi, qi gong,
progressive relaxation, and guided imagery. Burn survivors are certainly among those who are utilizing
these complementary approaches in conjunction with conventional medical treatments and reporting
positive experiences.
The Soul-Saving Miracle of Yoga
By Blake Tedder
You’ve probably heard that yoga is a great way to get
some gentle exercise and increase your flexibility. That
is certainly what yoga is known for. I lost a lot of weight,
sure, and quite easily began eating a vegetarian diet
too. I felt healthier than ever. But I could not write a
piece about yoga without telling you how it healed and
continues to heal my soul.
my body. That residual trauma (PTSD) wouldn’t let me
experience my body sensations and life itself. Through
the practice of yoga, which involves deeply stretching and
strengthening the body, deeply breathing, and focusing
the mind, I began to come back from the distancing
mental fog of trauma to feel alive and awake again in my
beautiful skin.
I will never forget lying on my back in a darkened room
at the end of my first yoga class 7 years ago. I was softly
weeping sweet, hot tears. I had “come home” to myself
for the first time. The feeling was that of wholeness, selflove, self-compassion, and self-understanding. I was now
“okay” and I realized that I had not felt “okay” in my life
until that very moment. I hugged myself and forgave my
heart for being so lost and driving and unaware for so
many years. It was like I had been walking around with a
heavy backpack, and I had all but forgotten about it until
it was taken off of me.
As burn survivors, it is easy for us to dissociate from our
bodies and sensations. It’s how our minds initially saved
us from experiencing the most intense of pains, being
burned alive. When I first began yoga, I often experienced
complete and utter panic—sweating, trying to escape,
and a racing heart. It was the stored trauma rising out of
me. Over time, through developing an easeful attitude
toward the intense sensations of stretching and through
breathing slowly and deeply, I lost the feeling of panic—
not only when I stretched but also in my daily life. I still
have heightened anxiety, but nothing like it was before
yoga became a part of my life.
Practicing yoga a couple times a week over the next
months I learned all sorts of interesting, scary, and
outright amazing things about my body, especially the
fact that I knew practically nothing about it. I knew all
sorts of names for parts of my body after a year or more
of hospitalization and physical therapy, but I didn’t know
how to live in all those parts of my body or feel them all
at the same time.
The trauma of surviving a plane crash, of being on fire,
and of the constant poking and prodding in the hospital
was still holding onto me deep inside the tissues of
It helps so much with scars too. I’ll be honest though,
stretching through scar tissue is often really painful.
It just is. That’s something we get to live with. But it is
often so rewarding to stretch through my scars when I
am gentle and when I take my time. I have a large scar
band running from my left knee up my left side to my left
nipple. I found a couple of years ago that if I contorted
my body in a certain way with my left arm on the top
of a doorway, I could stretch this big band. It usually
takes a good 5 minutes for the scar to really loosen up.
Sometimes I find that stretching through it is almost
intoxicating—all of a sudden I can breathe deeper, my
spine shifts back into alignment, I stand taller, energy
flows through my body, and my thinking is much clearer.
It’s absolutely amazing how the scar tissue can pull us
out of alignment. It can make us hunch over or turn a
shoulder this way or that, which can cause chronic pain
and discomfort. The gentle and prolonged stretching of
this tissue can bring a lot of relief. Just remember to be
kind and patient with your body and your mind, they’ve
been through a lot (to say the least).
I now know that stretching my body and scar tissue
immediately makes me think clearer and even more
lovingly because my mind and my body are not separate
things. This is one of the basic tenets of yoga and a
point we burn survivors need to take to heart. Like
many of you reading this, I owe my life to Western
(allopathic) medicine. I would not be here if it were not
for escharotomies, skin grafts, antibiotics, sterile surgical
techniques, and morphine. But it isn’t the whole story of
my recovery. The emotional recovery running alongside
my physical healing was and is still just as important.
And so the soul-saving miracle of yoga is that I now feel
in control of my own healing because I do not need
someone to do something to me anymore. I have had
enough of that anyway. Through calming my nervous
system with yoga and clearing out my thoughts with
meditation, I am bringing my mind and body back
together and leaving my trauma, layer by layer, behind
me—like I am running down the road on a summer day
stripping off heavy coats one by one. It is such a blessing.
I hope you can find a similar practice and experience
some of the same (or better) effects.
Shaking Free of Stress and Trauma
By Nkem Ndefo, RN, CNM
Tension and Trauma Release Exercises (TRE®) Certification Trainer and Provider
When it comes to managing stress and healing trauma,
how is that we can understand everything but still be
unable to shake free of the experience? Many of us
have tried traditional talk therapy, medications, and
relaxation techniques. We may even have experimented
with hypnosis and other alternative modalities. Yet we
still experience tension and find ourselves reactive to
old familiar triggers. All of these healing methods are
valuable but they miss one important fact about how our
bodies work.
When we are stressed or threatened, our bodies
physically tense and contract, especially muscles deep in
our core. At the same time, a cascade of neurological
and hormonal changes transforms our body for selfprotection and defense. Our senses sharpen, heartbeat
and breathing quicken, and digestion slows to a crawl.
Once we feel safe again, our bodies activate a natural
shaking mechanism to discharge the muscular tension
and reset our systems back to baseline. Many of us have
felt this trembling but few of us knew that our body
was literally shaking it off. Furthermore, in our culture,
shaking is seen as weak and out of control, something to
quickly suppress or hide. But if this tension is not shaken
out, then signals are sent to our brain that we are still
under threat, which causes us to tighten up even more.
A vicious cycle ensues.
So all of these great healing modalities help us understand
our experiences and give us many management tools,
but if we don’t shake, we are still in the grips of the stress
and trauma vortex. The big question is how to activate
this natural trembling mechanism.
While working in international war zones, David Berceli,
a social worker and bioenergetic practitioner, pioneered
a set of simple exercises that activate what is now
called the therapeutic tremor. The exercises, known as
Tension/Trauma Releasing Exercises (TRE®), have been
taught in 100 countries over the last 20 years. TRE has
been successfully utilized by large military populations,
traumatized communities exposed to natural and
continued on page 21
Every burn survivor deserves
support and tools to guide
his or her recovery journey.
Because of visionary supporters like you, we’re making it happen.
As a part of the Phoenix Society community, you understand the life-changing impact of a burn injury. The journey
of recovery often comes with challenges for mind, body, and spirit—for the survivor, as well as his or her loved ones.
Imagine that journey about 40 years ago… with only dozens of burn centers across the country, less sophisticated
medical care, and only a scattering of informal burn support groups—not to mention no Internet or Google. It was
incredibly difficult for burn survivors to make sense of their journey.
It was this need that became the heart of the Phoenix Society’s work: to
ensure that no burn survivor recovers alone. More than 35 years ago, we
began connecting people and creating resources for the challenges that
come after surviving a burn injury.
Because of people like you, our community has grown from recognizing a
need to leading the largest burn community in the nation. As our growth
continues, we ask for your continued support.
Each year, more than 48,000 people rely on our peer support programs,
educational events, and resources. We stand ready to meet even more
people in 2015—with crucial programs like Phoenix SOAR® and Phoenix
World Burn Congress.
Will you be part of creating the future of
burn recovery?
In addition to our core programs, the Phoenix Society plays a leading role in
lifting up the voice of the burn community and shaping the future of burn
recovery. Our experience, as well as the strength of our national network,
has made us a trusted partner, shaping the care a survivor receives.
Just one example of this is our partnership with The Johns Hopkins
Regional Burn Center, as well as The Johns Hopkins University Department
of Physical Medicine and Rehabilitation and Department of Psychiatry.
Together, we are developing and testing a new program to help burn
survivors manage their pain.
“There is no better champion
of the burn community than
the Phoenix Society. Without
its leadership over the past
35 years, burn recovery
would not be as hope-filled
and successful as it is today.
As someone who treats
people with burn injuries
every day, I understand
that surviving a burn is only
the beginning. The Phoenix
Society is my trusted partner
in ensuring that burn
survivors feel supported and
gain skills for life after they
leave the burn unit.”
David G. Greenhalgh, M.D.
Chief of Burn Surgery
Shriners Hospitals for Children
Northern California
Partnerships like this have the potential to create important innovation for
burn survivors and their loved ones. It is the strength of our community—
and your ongoing engagement—that makes such groundbreaking work possible.
By giving now, you continue your own partnership with our work and enable the Phoenix Society to
• Meet more burn survivors and their loved ones as they begin the journey of recovery through programs such
as Phoenix SOAR. In 2014 alone, nearly 13,000 patients in 64 hospitals have had access to this program.
• Provide essential education and resources to burn survivors and their loved ones as they get back to living.
From getting a child back to school to preparing to go back to work, we support each step in the journey.
• Connect the burn community through Phoenix World Burn Congress, online chats, and publications like the one
you’re reading now.
This important work is made possible by the investment every member of our community makes.
Every gift makes a difference—thank you for sharing yours!
Your Support Has Big Impact
Thank You
Every day, the Phoenix Society puts your gift to work to provide needed information and support to burn
survivors, their loved ones, healthcare professionals, and fire service members. Over the year, we engage a
community of more than 48,000 people—and we have plans to reach even more thanks to your support!
Burn survivors, loved ones,
and professionals received
information, resources, and
support from our website
Hospitalized burn patients
gained access to one-on-one
peer support from ‘someone
who’s been there’ through
the Phoenix SOAR program
Requests for assistance
received and personally
responded to with local
referrals, mailed resources,
and phone support
44,000
Survivors, families,
firefighters, and healthcare
professionals experienced
the life-changing Phoenix
World Burn Congress
13,000
Kids and teens experienced
Phoenix UBelong, a unique
program for youth and
families during Phoenix
World Burn Congress
1,100
Burn survivors furthered their
education dreams with the
help of the Phoenix Education
Grant—our highest number
of recipients ever
1,038
53
24
Invest in the Future of Burn Recovery—Make Your Year-End Gift Today
• By Mail – Use the convenient envelope provided in this issue.
• Online – Go to www.phoenix-society.org/give2014/
• By Phone – Call Megan Geerling at 800-888-2876.
Twenty-Four Students
Benefit from PEG in 2014
By Maureen Kalil
Education breeds confidence. Confidence breeds hope. Hope breeds peace.
— Confucius
In 2002, Barbara Kammerer Quayle, a school teacher at the
time of her burn injury, had a vision to give survivors the
confidence and hope that education would bring by providing
the initial funding for the first national survivor scholarship.
Later that year, the program, which Barbara named after
her mother, Peg, awarded just four scholarships. Since then,
the increasing generosity of countless donors has funded a
growing number of recipients.
In 2013, AlloSource, one of the nation’s largest nonprofit
providers of skin, bone, and soft tissue allografts,
pledged a $250,000 donation, which will be made over
10 years, to the Phoenix Education Grant (PEG) program.
This support will allow the Phoenix Society to make it
possible for many more burn survivors to achieve their
educational dreams.
Twenty-four burn survivors are furthering their
education in 2014-15 with the financial assistance of a
PEG. Reviewing the applications submitted this year
gave us confidence and hope for the future!
With the help of a PEG, Lauren Lind
enrolled as a freshman this fall at
the University of Cincinnati, where
she will “start a new chapter and
begin a new journey” in her life. She
looks forward to fulfilling her career
ambition of becoming a nurse and
her life aspiration to work in the burn center in which
she was treated following an injury at age 6. However,
Lauren isn’t waiting until she earns her degree to give
back to the burn community. She is already a volunteer
in the Phoenix SOAR® peer support program at Shriners
Hospitals for Children in Cincinnati, where she also
serves as a patient ambassador.
College freshman Zachery Jensen
has also dealt with the challenges of
a burn injury since early childhood.
After sustaining a burn injury to his
feet when he was just 2 years old,
Zachery says “it took a great work ethic
and strong will to attain a normal life.”
His experience has inspired him to pursue a degree in
radiologic sciences at North Dakota State University
so that he can help people recover from accidents and
injuries. Zachary says he intends to treat them with the
same kindness and compassion that he received from
his caretakers.
Hamida Pabai was already a college
student when she sustained a burn
injury in 2012, but it did not deter her
from continuing her education. “The
last thing I wanted to do was allow my
accident to hinder my life in any way,”
she says. The PEG recipient is pursuing
a degree in psychology from Bethel University. She
hopes that her education will contribute to her career
ambition of counseling individuals who have experienced
severe trauma, including burn injuries. “Essentially, this
experience has truly ignited my passion for seeing people
break through the stigma that is being a burn victim and
aiding them every step of the way, allowing them to see
themselves as a burn survivor,” she explains.
Mark Andrew Roseman is what is
often described as a “nontraditional”
student. The 36-year-old sustained an
injury on the job 3 years ago, the result
of an explosion in the manhole in
which he was working. Eager to make
a career change, he decided to follow
his interest in inventions and pursue
a degree in mechanical engineering. Mark, who lost his
wife to cancer just a year after his injury, is attending the
University of Michigan – Dearborn while raising his two
children as a single parent. It should come as no surprise
that his personal motto is “Keep moving forward.”
If you would like to support future PEG scholars
by contributing to the endowment that has been
established, you can call the Society office at 800-8882876 or donate online at www.phoenix-society.org. (Be
sure to indicate that your donation is for “PEG.”)
If you are a burn survivor who is pursing post-secondary
education, either college, university, graduate, or trade
school, keep in mind that the PEG application for next
year for will be posted on the Phoenix Society website in
early 2015. The deadline for submission is July 1.
To learn about the following 2014 PEG recipients, go to the Phoenix Society blog at
http://www.phoenix-society.org/blog
Shelby
Anderson
University of
California,
Irvine
Karey Herrin
University of
Cincinnati–
Clermont
College
Angelina
Peone
SUNY College
of Agriculture &
Technology at
Cobleskill
Marissa Bane
University of
North Carolina
at Chapel Hill
Nathan Alan
Honeycutt
North Carolina
State University
Alexi Pyles
Bethany College
Jacob
Bergstorm
Northwest
Christian
University
Baylor
Juelsgaard
University of
Wisconsin River Falls
Jose Rivas
University of
Colorado Denver
Katherine
Bostic
University of
Georgia
Brooke Linman
San Diego State
University
Joshua Talbert
University of
South Carolina
Haley McClure
Western
Iowa Tech
Community
College
John-Paul Vega
University of
Texas at San
Antonio
Sara
Christenson
Miami
University –
Middletown
Elaina Meier
University of
Wisconsin
Tyler Watkins
Memorial
University of
Newfoundland
Dulcia Halliday
State University
of New York at
New Paltz
Linda Palmer
Branford Hall
Career Institute
Bridget Brown
Western
Nebraska
Community
College
Self-Compassion:
What It Is, How It Can Help
By Samantha Price, MHDL, NCC, LPC
How often do you catch yourself, saying unkind things to
yourself, such as “Oh, how could I be such a jerk?” or “If I
weren’t so careless all the time, I wouldn’t have made that
mistake!” or “You idiot!” (or maybe much worse). Would
you say these things to a good friend? I’ll bet that you
would never consider talking to a good friend that way.
Yet it seems that harsh self-judgment has become normal
for many of us and we may even believe that it is the best
way to motivate ourselves to do better. However, there is
a better way to motivate yourself to do better, to deal with
difficult situations, and to feel better in general.
There is a growing awareness, backed up by hard
evidence that such self-critical treatment is not helpful
and can be very harmful to our ability to feel good about
ourselves and to make positive changes in our lives.
In fact, such harsh self-criticism tends to make us feel
depressed, anxious, insecure, and afraid to take on
new challenges. Clearly, this is not the way to motivate
ourselves (or others) to do better.
The growing movements of self-compassion and
mindfulness are linked by the growing awareness and
evidence from a huge body of research that indicate
that treating ourselves (and others) with kindness not
only feels better but also allows us to make healthy
changes and face new challenges with more success.
Self-compassion not only helps heal negative states but
also increases positive ones. Specifically, research on
self-compassion shows that self-compassion enhances
emotional resiliency, boosts happiness, gives us more
ability to manage traumatic emotions, reduces anxiety
and depression, leads to less perfectionism and less
shame, reduces stress, and can even maintain healthy
lifestyle habits, such as diet and exercise.
If compassion is the feeling of caring for and wanting to help
others who are suffering, then self-compassion is applying
the same feeling toward ourselves. If others are worthy of
this awareness, then we are also.
So What Is Self-Compassion?
According to Kristen Neff (one of the principal researchers
of this new movement), self-compassion consists of
three elements: self-kindness, common humanity, and
mindfulness. Looking at these three elements separately
allows us to take a look at self-compassion and gives us
ways to develop more self-compassion in our lives.
Self-kindness
If we recognize compassion as treating others kindly,
then self-compassion is turning that same caring heart
and attitude toward ourselves—in essence treating
ourselves as we would a good friend. If a good friend
is having a difficult day, we would listen to them, offer
some care, and be there for them. So treating ourselves
with self-kindness first means that we have to notice
that we are having a difficult time (when that is true)
and then it means that we treat ourselves with care and
understanding. That might mean just acknowledging
our feelings and soothing ourselves. It may also mean
encouraging ourselves to go on, try something again, or
whatever we might need in that particular situation. We
act as our own best, encouraging friend.
Common Humanity
Another element of self-compassion is common
humanity. Common humanity recognizes that all people
suffer, that suffering is a part of life for everyone at some
time, and that we are not better than or less than anyone
for feeling these things. It allows us to see ourselves
and others as part of a larger whole and, therefore, to
avoid the isolation that we might feel if we see ourselves
(or others) as “less than” or not as good as others.
When we recognize that we are all part of the shared
human experience, then we can see that we are all in
this together. Our experiences, difficulties, pain may be
different in specifics but we all experience difficulties,
imperfections, failures, successes, etc. This awareness
allows us to be more compassionate toward ourselves
and others.
Mindfulness
The third element, mindfulness, is being aware of
ourselves in the present moment without judgment.
Mindfulness is “knowing what you are experiencing
while you’re experiencing it.”
— Guy Armstrong (meditation teacher)
Mindfulness is about being with painful emotions (as
well as positive ones) and, therefore, noticing rather
than avoiding them. In that way, we can choose to use
self-compassion to help ourselves deal with them. It
doesn’t mean that we exaggerate them or stay in them.
Mindfulness means letting things be as they are—if
we are suffering, we notice our suffering, offer care
to ourselves, and sometimes take some steps to help
ourselves move forward.
Without mindfulness, we often fail to notice that we are
feeling discouraged, anxious, tired, hungry, tense, etc,
and we may fail to act in a way that might be helpful. Being
mindful is an attitude that can be practiced in formal
ways, such as through mindfulness meditation practices,
or it can be practiced in the simple act of noticing the
breath go in and out of your body. This simple practice,
done for as little as a minute or two, can increase our
awareness of what is happening in the present moment.
You can “remember to notice.”
Mindfulness means paying attention in a
particular way; on purpose,
in the present moment, and non-judgmentally.
—Jon Kabot Zinn
So the elements of self-kindness, common humanity,
and mindfulness can be used to understand what is
meant by self-compassion as an attitude and as a way
of being. With practice, self-compassion can take the
place of self-critical attitudes. As with other challenges,
be compassionate with yourself as you practice the
exercises below. In addition, there are a growing number
of self-compassion classes taught in the United States
and in Europe (see Resources on page 20).
Self-Compassion Practices
I. Changing Your Self-Talk
One way to practice self-compassion is to use
compassionate ways of talking to yourself when you
find that you have made a mistake or fallen short
of your expectations. Listening to your self-talk and
changing it from judgmental to self-compassionate
talk can be difficult at first but becomes easier with
time. Don’t take yourself so seriously. Exercise your
sense of humor—it is magic.
II. Self-Compassion Break
(from Mindful Self-Compassion Course, used with
permission from Christopher Germer and Kristen Neff)
When you notice that you’re feeling stress or
emotional discomfort, see if you can find the
discomfort in your body. Where do you feel it the
most? Make contact with the sensations as they arise
in your body.
Now, say to yourself, slowly:
1. This is a moment of suffering.
That’s “mindfulness.”
Other options include:
This hurts.
This is tough.
Ouch!
2. Suffering is a part of living.
That’s “common humanity.”
Other options include:
Other people feel this way.
I’m not alone.
We all struggle in our lives.
Now, put your hands over your heart, or wherever it
feels soothing, feeling the warmth and gentle touch
of your hands.
continued on page 20
Continued from page 19
brings you genuine happiness (for example,
meet with friends, send a birthday card, play
a game)? Is there any way that you’d like to
enrich these connections?
Say to yourself:
3. May I be kind to myself.
See if you can find words for what you need
in times like this.
Other options may be:
May I accept myself as I am.
May I give myself the compassion that I need.
May I learn to accept myself as I am.
May I forgive myself.
May I be strong.
May I be safe.
(pause)
4. May I give myself the compassion I need.
If you’re having trouble finding the right language,
sometimes it helps to imagine what you might say
to a dear friend struggling with that same difficulty.
(pause)
Can you say something similar to yourself, letting
the words roll gently through your mind?
III.Self-Compassion in Daily Life
(used with permission from Germer and Neff)
To be compassionate to yourself means to
•Know when you’re under stress or suffering
(mindfulness).
•Respond with care and kindness (selfcompassion). The simplest approach is to
discover how you already care for yourself,
and then remind yourself to do those things
when your life becomes difficult.
Physically – Soften the body.
How do you care for yourself physically (for
example, exercise, massage, warm bath, cup
of tea)? Can you think of new ways to release
the tension and stress that builds up in your
body?
Mentally – Reduce agitation.
How do you care for your mind, especially when
you’re under stress (for example, meditation,
watch a funny movie, read an inspiring book)?
Is there a new strategy you’d like to try to let
your thoughts come and go more easily?
Emotionally – Soothe and comfort yourself.
How do you care for yourself emotionally (pet
the dog, journal, cook)? Is there something
new you’d like to try?
Relationally – Connect with others.
How or when do you relate to others that
Spiritually – Commit to your values.
What do you do to care for yourself spiritually
(pray, walk in the woods, help others)? If you’ve
been neglecting your spiritual side, is there
anything you’d like to remember to do?
Add some of your own spiritual and healthy
living practices, including religious practices,
meditation, gardening, hanging out with pets
and children, or anything that enhances your life.
It helps to remember that our inner critic is often
formed in childhood when we receive critical messages
from parents, teachers, or other influences, rather than
sufficient nurturing, positive feedback that allows us to
grow, learn, and develop from a nurturing compassion
place. Therefore, it helps to have patience with ourselves
as healing these inner messages often takes time and
effort.
Exercising your own creativity in addressing self-criticism
and transforming it into self-compassion is a practice
well worth your time and energy. You can change your
harsh critic into a warm, helpful supporting ally and
increase your resiliency, happiness, joy and feeling of
peace. Become more self-compassionate and you will
always have a friend at your side.
Resources
Germer CK (2009). The Mindful Path to Self-Compassion:
Freeing Yourself From Destructive Thoughts and Emotions.
New York: Guilford Press.
Gilbert P (2009). The Compassionate Mind: A New Approach
to Life’s Challenges. Oakland, CA: New Harbinger Press.
Neff KD (2011). Self-Compassion: Stop Beating Yourself Up
and Leave Insecurity Behind. New York: William Morrow.
www.centerformsc.org
www.greatergoodberkeley.edu
www.mindfulselfcompassion.org (classes in mindful
self-compassion in the U.S.)
www.self-compassion.org
Samantha Price, MHDL, NCC, LPC, is a psychotherapist in
private practice in Grand Rapids, Michigan, who is committed
to helping her clients and herself learn to be more selfcompassionate.
Shaking Free of Stress (continued from page 13)
war-related disasters, first responders, mental health
professionals, teachers, prisoners, individuals with
posttraumatic stress disorder, and athletes.
Designed as a self-directed method to be taught in
group settings, TRE is easily learned, reproduced, and
independently practiced. There are seven exercises that
gently stretch and mildly fatigue muscles in the legs,
pelvis, and lower torso. Individualized modifications are
available, allowing successful participation regardless of
disability, mobility challenges, or fitness level. Once the
therapeutic tremor is activated, lying in a relaxed position
allows a typically enjoyable release to unfold. The selfcontrolled muscular shaking can be easily stopped and
re-started at any time.
Because TRE is primarily a physical release, it is
unnecessary to relive traumatic events although regular
practice often brings a sense of emotional calm and
resilience. Other reported benefits include decreased
pain, increased mobility and range of motion, improved
sleep, an increased sense of connection, and improved
overall quality of life.
Stress and trauma are unfortunate parts of life, but if
we can understand how to use our body’s natural selfhealing abilities, we don’t have to remain stuck in cycles
of tension and despair. We can literally shake it off.
Key Points
• The therapeutic tremor is the body’s natural stress
and trauma release mechanism.
• Tension/Trauma Releasing Exercises (TRE) are 7
simple exercises designed to activate the therapeutic
tremor.
• TRE benefits include decreased pain, increased
mobility, and improved quality of life.
• TRE can be practiced in groups, individually, and
independently.
Learn More
Answers to frequently asked questions, testimonials,
books and DVDs, research, and practitioners can be
found at traumaprevention.com and trelosangeles.
com. Note: If there is no practitioner local to you, many
practitioners are available via video-conferencing
software, such as Skype and Google Hangout.
To learn more about complementary medicine, including
mind and body practices, see the online fact sheet provided
on the National Center for Complementary and Alternative
Medicine website, http://nccam.nih.gov/health/whatiscam.
27th ANNUAL PHOENIX WORLD BURN CONGRESS 2015
Indianapolis Marriott Downtown
Indianapolis, IN
October 21-24, 2015
Lead Sponsors:
Phoenix WBC
Bringing People Together
to Share the Journey
By Amy Acton, RN, BSN
Executive Director
Our human compassion binds us the one
to the other—not in pity or patronizingly,
but as human beings who have learnt how
to turn our common suffering into hope
for the future.
—Nelson Mandela
After returning from the largest Phoenix World Burn
Congress in our history, with 1,038 registered attendees,
there is a feeling of tremendous excitement that so many
were able to gather together to heal and grow, including
the more than 450 first-time attendees. However, there
is also a sense of urgency as we work to respond to the
growing requests for help.
Three Factors for Our Success
The Phoenix Society has been successful in expanding
the impact of our programs because of three key factors:
Our Unique Voice—The greater Phoenix Society
community brings a unique voice and perspective to
living with a burn injury. Together we have found ways to
support one another in the steps to healing. Those who
have experienced the caring people of the Society and
benefited from our resources recognize the value of the
Phoenix Society as a hub of long-term recovery.
More than 250 individuals volunteer, more than 179
organizations serve as sponsors, and more than 70 send
survivors, all to ensure our collective goals are met for
this annual event. The knowledge and experience gained
there influence everything we do and benefit the entire
burn community.
The staff at the Phoenix Society is fortunate to work
with literally thousands of volunteers each year to
reach survivors and their families with our programs.
Among these are the dedicated members of the
Phoenix WBC Planning Committee. The success of this
event is due largely to the fact that all segments of the
burn community are represented here. They not only
contribute to the goals we have for the Congress itself,
but also help us find ways to reach out to those who are
unable to attend.
Another important group to which the Phoenix Society
owes its success is our board of directors. Under the
leadership of our president Pat Horan, a burn survivor,
the board is helping us to chart the course for the future
of the Phoenix Society—and to respond to expanding
requests for our programs and services. I, for one, am
grateful for their steadfast commitment to the mission
of this vital organization and stand ready to help take
our organization to the next level.
Three Key Areas of Our Mission
A Collective Goal—I believe that the realization that
there are still thousands of people out there struggling
alone to heal from a burn trauma drives us all. The
Phoenix Society, as well as many local burn centers and
organizations, share a goal of wanting to ensure that no
one ever feels isolated on this journey of burn recovery.
The important message we all strive to convey is “You
are not alone.”
It is Phoenix World Burn Congress that serves as the
catalyst and hub for the programs and resources that we
provide in three key areas of our mission: peer support,
education and advocacy. Your voice and those of the
hundreds of other attendees who represent the various
segments of the burn community help us determine
how we can maximize our impact. You directly influence
the future work at the Phoenix Society and guide us in
developing ways we can best address the long-term
needs of families affected by a burn injury.
True Teamwork—The laser focus of the staff, volunteers,
and our many partner organizations has allowed us
to create a safe haven for healing at Phoenix WBC.
If you were unable to join us this year in Anaheim, please
be assured that the impact of this event will extend
beyond the more than 1,000 people in attendance. We
will all benefit by the knowledge and experience gained
about burn recovery at the Phoenix WBC. You will see
it presented in a variety of formats within our online
community, in Burn Support Magazine, and through
Phoenix Society advocates and speakers.
Building long-term resources is the ultimate goal of
holding a national congress and we continue that work
in the office every day providing tools for recovery and
referrals to more than 1,000 individuals annually who
otherwise would be walking on this journey alone. Our
message reaches more than 44,000 people on-line, as
well as countless others who receive Phoenix Society
information through their local burn centers and
foundations.
This graphic illustrates how, considering your input, we
carry out our mission year round:
MISSION FOCUS
Peer Support
19%
Education
Percentage
of
Investment
Advocacy
44%
The peer support that happens at Phoenix WBC also
doesn’t end when the Congress adjourns. Phoenix
SOAR®-trained peers offer support in more than 64
burn centers every day, providing access to this vital
component of burn recovery to more than 12,000 new
survivors and their families each year.
A Simple But Powerful Promise
No one else does what we do. The Phoenix Society for
Burn Survivors is the leading national organization that
provides caring people to share the journey of recovery
with burn survivors and their families and the resources
to help make the experience of burn injury easier. The
Phoenix Society is where those looking to heal and get
back to living turn.
The investment, involvement, and expertise of the
hundreds who participate in Phoenix WBC, the Phoenix
Society board and staff, and thousands of members and
volunteers make the Phoenix Society what it is today and
help us reach our goals for tomorrow.
Nothing heals people like other people. So we invite you
to join this family of support—to ensure that no one ever
has to go it alone in his or her burn recovery. Help us
reach our collective goal so that no one feels alone on
their path to healing.
Our promise to burn survivors is simple but powerful:
You are not alone. You can get back to living. The Phoenix
Society makes that possible by providing the necessary
resources and bringing caring people together to share
the journey.
37%
Below you can also see the tremendous growth in
Phoenix WBC since 2001 when we first partnered with
the local burn centers and foundations to hold the
Congress. We now include the fire service in our Phoenix
Society family and have expanded our programming to
meet the needs of attendees of every age.
Our collective story has been growing stronger ever
since Alan Breslau founded the Phoenix Society more
than 35 years ago. It started with one man who had a
vision and began working to create a reality in which no
one is alone after a burn injury. He believed as I do that
together we can support one another so life can be lived
fully after a burn injury.
Phoenix WBC 2001
Total 454
Phoenix WBC 2014
Total 1,038
687
Survivors & Family
327
Survivors & Family
283
108
Care Providers
19
Firefighters
Care Providers
68
Firefighters
Donor Recognition
We wish to thank the following individuals and organizations for their contributions made between April 1, 2014, and September 30, 2014:
Diamond Phoenix
Project Paradigm
Platinum Phoenix
Kidde
Golden Phoenix
Bio-Oil
Boston Firefighters Burn
Foundation
Common Voices
Dr. G. Mark and Sandra
Cramolini
Illinois Burn Prevention
Association
Integra Foundation
National Christian
Foundation East
Tennessee
National Fire Protection
Association
National Fire Sprinkler
Association
New York Firefighters Burn
Center Foundation
Spiegel Burn Foundation
Sprinkler Fitters Local Union
550
The 5th Commandment
Fund
Silver Phoenix
Carbide Concepts Co LLC
Cunningham Law Firm
DC Firefighters Burn
Foundation
Edith Blodgett Legacy
Fund of The Brookby
Foundation
IAFF Charitable Foundation
InsurMark, Inc.
Mölnlycke Health Care
Novartis Pharmaceuticals
San Jose Firefighters Burn
Foundation
Storis Inc.
Swartz & Lynch
Bronze Phoenix
Abco Peerless Sprinkler
Corporation
Altair Corp
Chicago Firefighters Union
Burn Foundation
Chick-Fil-A, Inc.
Children’s Burn Foundation
Combined Federal
Campaign of the National
Capital Area
Community Tissue Services
Dematic Employee
Association
Firefighters’ Burned
Children Fund CharlotteMecklenburg
Children Fund Gaston
County Chapter
Children Fund Mount
Holly Chapter
From Tragedy to Triumph
Foundation
Dr. David G. Greenhalgh
and Kathy B. Greenhalgh
Grossman Burn Foundation
Brian and Jean Hall
Vinod K. Jindal
Walter and Wanda
McLaughlin
Andrew D. McLean
Gerhart and Ruth Schuebel
Chief Ronald J. Siarnicki
Dr. Lynn and Pat Solem
The Taco/White Family
Foundation
Tulare Firefighters
Association
West Hills Hospital &
Medical Center
Lon and Patricia Wojtowicz
Supporter
Amy Acton, RN, BSN
Michele Anderson and
Frank Nickerson
Anonymous
Sarah and Joseph Bazey
Douglas Beebe
Benevity
Dennis and Donna Bosch
Nancy Braudrick
Linda and Carl Carpenter
Charitable Flex Fund
Karen Colligan
Kathryn L. Comtois
Kevin Cook and Jill Sproul
Daniel F. Cosgrove
Michael F. Courtney
Elizabeth Dideon Hess, LSW
Denise and George Doherty
William J. Dominic, MD
Courtenay Dunn
Exelon Corporation
Norene L. Fagan-Blanch
Darren F. Fell
Carolynn E. Ferris
Children Fund Catawba
Chapter
Children Fund Watauga
County Chapter
David Gagnon
Gary Gokey
Melinda S. Goodrich
Alan and Teresa Goss
Suzanne L. Haar
Maryanne D. Helffrich, MD
David A. Henderson
Lisa Hendrix, RN
Brennon and Vicky Hope
Gregg R. Huennekens
Illinois Tool Works
Foundation
Barbara A. Kammerer
Quayle and Ken C.
Quayle
Gary S. Keith
Areta Kowal-Vern, MD,
FAAP, FCAP
Rhonda J. Kurtz
Lancaster County Firemens
Association, Inc.
Jeanne LaSargeBono
Kenneth and Lindsay
Leeberg
Stacy and Tom Lyons
Making Grade, LLC
Mike Mansbach
Steven Marbes
John McCall
Darlene L. Meacham
Michelle Mercier
Gail W. Miller
Peter K. Normandin
North Carolina Community
Foundation
David and Martha Parker
Thomas Pessotti
Priority Health
Robert and Patricia Reed
Bonnie Reid
Lyle Sathoff
Scaffold Service Inc
Curtis and Magaly Schaeffer
Steven and Cheryl
Schneider
Marc Schupan
Derek Silva
Dr. Guy Silva and Mary Silva
Dana Smith
Kim, Jordan and Ben Souza
Standard Insurance
Company Employee
Giving Campaign
Robert Stangler
Nilda L. Claudio Stevens
James Stoddard
Alden and Gustavus Taylor
Thoreson Promotions, LLC
TMMC Inc.
Victim 2 Victor Inc.
Waltham Lions Charitable
Foundation
Wiginton Fire Systems
Friend
3 Rivers/Pennsylvania West
CFC
Carl R. Abramson
Don Adamson
Kathryn D. Agerbeck
Edith H. Ajello
Alan and Dorothy Akerson
Joseph M. Albers
Walter Alexander
Kim Almquist
Tiana L. Alves
Laurie Amaral
AmazonSmile Foundation
American Fire Sprinkler
Association
Phyllis Anchorstar
Tina Andersen
Dale E. Anderson
Joan and Scott Anderson
Patricia J. Anderson
Rachel Anderson
Wayne R. Anderson
Glenn W. Angers
Anonymous
Lou Arasi
Area 1 Fire Inspector’s
Association
Arizona Combined Federal
Campaign
Ashi Arora
Maria Ashley
Alicia R. Assad
Atlas Private Wealth
Management
Janet and Forrest Aurentz
Automatic Fire Alarm
Association of New
Jersey, Inc.
B.U.R.N.S.
Dr. Karen L. Badger and Dr.
David Royse
Linda M. Bailes
Ed Bailey
Clifford and Priscilla Baker
Dolores Baker
Steven Baker
Dave Balardini
Megan Baldonado
Stephen F. Banks
Frank Barber
Lani Baris
Giuseppe Barisan
Marilyn Barlow-Oldrid
Jeffrey P. Barrett
Stan and Kaye Barrett
Deborah Bateman
Tim and Melissa Baynum
Carla Beaurline
Karen L. Beck
Marc Becker
Mary Jane Beehner
Mark P. Beggan
Leatrice and Stanley Bell
Patricia Bell
Craig D. Bender
Gerald Bennett
Michele M. Bennett
LouAnne Berg
Berkley Donuts, Inc.
Michelle S. Berning
Biomentor International Inc.
Barbara R. Birmingham,
CRNP
Chris Bivins
William Bivona
Timothy S. Bjork
Chris and Sandy Black
Patricia Blakeney-Creson,
PhD
Richard D. Bledsoe
Sigrid Blome-Eberwein, MD
Christian and Susan Blough
Cassie M. Bonngard
Timothy Bopp
Lorraine Bosch
Vicki Bosch
Deborah L. Bostic
Keith and Marilyn Bowers
Leo R. Bozzuto
Gretchen Branam
Mary K. Brand
Angela A. Brandolino
Bravelets LLC
Steve and Karen Bray
Alan and Delwyn Breslau
Matthew J. Bresnahan
Richard and Susie Brigham
Michelle Brightman
Amy and Bradley Brinkman
Joan Britland
Nicole Britland
Catherine A. Brizzell
Chris and Cathy Brockett
Megan Bronson, RN, MSN, CS
Christopher Brouch
Eric Brouch
Kelley Brown
Laura and Jeff Brown
Randy and Susan Bruegman
William and Regina Buhr
Douglas J. Bull
Raymond F. Bullock, Jr.
Jan Burger
Anthony F. Burke and
Stacey Loen-Burke
Barry and Patty Burkhart
Burn Foundation of Central
New York
Sandra K. Burns
Camelia G. Burtea
Deana G. Butler
Ashley M. Byrne
Kimberly Calman
Magdalena E. Campos
Martha Campos
Alejandro Carbajal
William R. Card
Michael H. Cardozo
Care Plans For Life, LLC
John P. Carey
Lorraine Carli
Rita Carole
Darrell T. Carpenter
William and Jeanette
Carraway
Stephen M. Casey
Cynthia D. Cedeno
Andy Chacon
John and Pamela Chadwick
Kelly A. Chadwick
Anna P. Chambers
Beverly and Frederick
Chapman
Robert and Judith Chastain
Lily Chatterjee
Julie Che, RN, MSN
Chesapeake Bay Area
Combined Federal
Campaign
Chicago Backflow Inc.
Pauline Chisholm
Piotr Chmielewski
Holly Christian
Susan Churcher
Cinema Secrets, Inc.
Anthony N. Ciuffo
David and Amy Clark
Clark, Hunt, Ahern & Embry
Eric and Brenda Clausen
Corrine and Peter Clavey
Cory B. Cleary
Andja H. Clegg
Philip and Ellie Coffman
Neil Cohen
Kelsey Colburn
Chuck Coletti
Scott Collard
Susan Colligan
Cathi Colman
Judith A. Colman
Columbus/Ft. Benning
Regional Combined
Federal Camplaign
Combined Federal
Campaign of Eastern
Massachusetts
Combined Federal
Campaign Overseas
Elena Combs
Odette Comeau and Foster
Sayles
Comprehensive
Rehabilitation
Consultants Inc
Chief Dennis Compton
Dianne P. Coonan
Chris and Nancy Cox
Alexander and Susan Coxe
Charlena Cozza
John Crawford
Cull Group
Carey and Jason Cummins
Diron Cundiff and Jeni
Yielding
Austin and Laura Curtin
Kenneth J. Czillinger
D & S Setting Tools
William and Nicole Dahmen
Tom Day
Steve and Marie Dean
David J. Dedrick
Pablo DelaRosa
Howard Delinck
John Dellacava
Todd J. Denison
Rebecca F. Denlinger
Denver Fire Fighters Burn
Foundation
John S. Derr
Sandra DeSimone
Detroit Fire Fighters
Association
Leeann Dias
Marjorie Dias
Peter Disalvio
Brian Doherty
Chris Doherty
Patrick Doherty
Wendy E. Domster
Virginia T. Donelson, CRNA
Douglas and Gail Dooley
Ted A. Dosch
Chuck and Rosemary
Dougherty
Michael and Laura Driggers
Lindsay Drisko
Marylou K. Drohr
Karen M. Dubiel
Susan Dunfield
Gerald and Regina Dunn
Eileen and Raymond Duval
Rebecca and Matthew
Duval
Robert and Donna Duval
Eastern Pennsylvania and
South Jersey CFC
Sandra and Robert
Edenfield
Thomas and Beth Edge
Janet E. Edwards
Kathleen Egan
John A. Einum
Thomas W. Elder
Tom Emme
Chrissy Engelhardt
Raeleen Epperson
Alana Epsten
Allen and Sherry Erdmann
Mark K. Erickson
Holly L. Ernst
Kate Errett
Clair Estefanos
Lynn R. Falzone
Michele Farah
Chief Ronald R. Farr
Jason and Barbara Fazio
Martha Feichter
Kenneth Fell
Lori and Matthew Ferdock
Susan and Neil Fineman
Firefighters Burn Fund Manitoba
David Fischler
Kevin and Robin Fitzgerald
Denise L. Flanagan
Leslie Flowers
Robbie L. Flowers
John P. Foley
Michelle Foltz
Christie Foremsky
Lawrence Forman, M.ED
Fort Campbell Area
Combined Federal
Campaign
Bethany Fossella
Robert Foster, Esq
Dennis and Charlene Fowler
Jonathan Franzen
Edward and Gloria Freeland
Emma Freeland
Emily Frei
Candace A. French
Daniel French
Jane and Brian Friolet
Michele R. Frost
Chelsea Fu
Lu Ann Furtado
Donna S. Gallegos
Shawn and Melanie
Gardner
Elaine Garlock
Linda and Gerard Garren
Bev and Bruce Gartner
Gateway Combined Federal
Campaign
Kathleen Gauthier
Megan Geerling
Dorothy D. German
Michael H. Gibbemeyer
Marsha P. Giesler
Joanne P. Gilbert
Jay Gildea
Dan Gilles
Steve Gillispie
Dr. Marie Giordano
Give With Liberty
Michelle Glassmann
Suzanne M. Glazer
Global Health and Safety LLC
Brenda K. Goehring
Joe G. Gonzales, MD
Carlos Gonzalez
Cara Goodman
Bob and Barbara Goodrich
Google Inc
Kelly A. Gorman
Sarah Goschy
Judith Graf
Grande Prairie and District
Burn Society
Tara L. Grant
Mollie and Bryan Grass
Ellen Gray
Jeffrey Gray
Samantha Grear
Greater Mississippi CFC
Olin L. Greene
Jay Greska
Ellen E. Griffith
Jeanne Griffith
Martin Grillo
Michael and Sharon Grodi
John Gropper
Thomas K. Guelzow, Esq
Anthony R. Guertin
Andrew J. Gurvey
Kara M. Guyton
David and Heidi Habel
Paul Hahn and Charmaine
Rimple
Art Hall
David C. Hall
Kevin E. Hall
Shanna Hall, BSN
Stephen Halliday
Michael Halperin
Richard and Mary Halpert
Susan Hambly, MD
Stephen and Judith Hamelin
William N. Hamilton, Jr.
Mark R. Hanlon
Kerri Hanson
Debra Harkins
Janet Harman, RN
Gary R. Harnois
Dale Harper
Doreen L. Egarr-Harris
Jennifer M. Harris, LICSW
Kevin Hart
Larry Hartwig
John R. Harvieux
Robert and Sharon Hasapes
Loriana Hatch
Deborah Gage Haude
Hawaii Pacific Area
Combined Federal
Campaign
June Hazelwood
Heart of Alabama
Combined Federal
Campaign
Heart of West Michigan
United Way
Debra Helms
Elizabeth A. Helstad
Ruth A. Henneman
Caroline and Samuel
Hennig
Dana Henry and Sarah
McDonald
Frank and Linda Hensley
Jaime V. Hernandez
Linda J. Hertz
Jill Hessberger
Christine and Mark
Hillgartner
Mary Ellen Hogan, RN
Suzanne S. Hojara
Bruce Holbert
James Holmes, IV MD
Raymond and Elizabeth
Hook
Eileen Hoover
Howard and Bonna Hopper
Nancy Horch
Heather Hubbard
Michelle R. Hughes and
Clara J. Smith
Cynthia Hunker
Nick and Lea Hunt
Doug Huskey
Rebecca Huss
Institution Of Fire Engineers
Shannon M. Jackson
Todd Jackson
Ben D. Jacobus
Erin Jamieson
Gail Janas
David and Mary Jans
William A. Jennings, Jr.
Marion Jerue
Shannon L. Jipsen
Victor Joe, MD
Steve J. Joerger
David and Margaret
Johnson
Karen S. Johnson
Lisa and Russell Johnson
Lori Johnson
Michael Johnson
Susan Stack-Johnson
Cheryl A. ThompsonJohnstone
Elizabeth and Fred Jones
Jenny M. Jones
R. Bruce and Janet Jones
Jerry E. Joullian
Rick Joy
Steven E. Joyner, Jr.
Kevin and Linda Jurus
James and Mary Kacmar
E. Tonas and Maureen Kalil
Barbara Kanegis
Jonathan and Carol
Karalekas
Donna M. Karam
Barbara Vrankar Karim
Richard and Judith
Karmolinski
Kristin L. Kasputis
Edward and Josephine
Kavcak
Joanne Kearney
Nicole and Mark Kehoskie
Lindsay E. Keith
Shannon and Derek Kelley
Mike Kelsey and Corrina
O’Brien Kelsey
William B. Kerrigan
Sara M. Kirschbaum
Kent L. Kiser
Stanley J. Klakulak
Karla Klas
Dr. Robert L. Klein and
Karen Klein
Connie Klingback
Jeremy Klingback
Millayna Klingback
Darlene Knauss
Jerrold Knee, Esq
Michael and Lana Knight
Glenda S. Kohls
James and Denise Koonce
Claudine Kos
Connie Kos
Donna Kos
Emily Koss
Stephen Kostopoulos
Andria Booth-Kowalczyk
Rozann Kraus
Bruce A. Krause
Fred Kroll
Mona Krueger
John and Kathleen
Kucharski
Navin Kumar
Tracy L. Kunstman
Robert J. Kvidt
Nan E. Kyllonen
Sallie Kyllonen
Thomas Lamora
Roberta LaPorte
Debra Larsen
Lynelle and James
Laventure
William and Nicole Leahy
Mark Lehman
Miriam and Scotty
Lejonvarn
Leo and Connie Lemieux
Glenn Lemke
Toby Levenson
Tom and Cathy Lia
Jeannette and Joe Lind
Anita L. Lituri
Carlos Lobato
Marilyn D. Lodoen
Timothy P. Loftus, Esq
Tracy Long
Alexa Loukides
Fabiana I. Lowe
Anthony Lucie
Jim Lucie
Reagan L. Lucie
Brian M. Lutz
Mary and Mike Lutz
James and Irene Lynch
George and Hillary Lyons
Theresa Macaluso
Donald A. Macchioni
Mr. Connie R. MacDonald
Christine R. Mackleit
James W. Madson
Pamela F. Mahoney
Brenda S. Millay-Mai
Marianne C. Majewski
Michelle Malone
Walker C. Malone
Brian Maltby
John and Gabrielle Mangan
Thomas J. Marbes
Richard and Alice Marek
Chris Marino
Julie C. Marra
William F. Marsh, DDS
Joan E. Marshall
Donald and Tracy Martin
Jessica B. Martin
John Matthews
Vicki May
James and Sherri Maymon
Jaime McCallum
Thomas J. McCarthy
Laura McCullough, PT
Amanda McCuskey
Leslie A. McDonald
Charles McElroy
James McFadden
Catherine A. McHugh
James T. McHugh
Mark McIntosh
Darryl and Andrea
McLetchie
Elizabeth McLoughlin
Kevin and Ann McNabb
Rhonda L. McNamara
Mike McVeigh
Medical Art Prosthetics,
L.L.C.
Tracey Mefford
Barbara and Donald
Meinecke
Mary Messier
Metropolitan Rehabilitation
Services Inc
Kathy and Paul Meulemans
Robert C. Meyer
Paula M. Micciche
Humphrey Miller
Dr. Sidney F. Miller and
Barbara L. Miller
Sara-Jane Milne
Cheryl C. Milot
Jessica Mink
Shayne D. Mintz
Minuteman Press
Kaz and Pat Miyagi
Joseph M. Mlakar, MD, FACS
Don R. Mleziva
Belinda and John Monts
Bradley and Karen Monts
Colleen P. Moore
Wayne D. Moore
Samuel J. Moore-Sobel
Michael and Karen
Morgenstern
Sharon M. Morien
Michael Morin
Jim and Sue Morris
Muriel Motard
Alan Mount
Melissa M. Mowry
Mike and Leigh Moynihan
Mulberry Consulting
Steve Muncy
Dennis and Linda Murphy
Nancy Murray
Frank G. Muscarello
Jeffrey K. Naslund
Nassau County Firefighters
Burn Center Foundation
Amy M. Nelson
Diane Nelson
Pat and Ron Nelson
Luis Nevarez
Toni Newton
Catherine J. Noga
Judith Nonnenmacher
Michael R. Normant
Sam Normington
North Coast Ohio Combined
Federal Campaign
Northeast Georgia Health
System
Northern Illinois Fire
Sprinkler Advisory Board
Julie Notarangelo
Nursing Consultation
Services Ltd
Shawn M. Oberg
Sharon O’Brien
Taylor Oddino
Derek Odell
Sherie Oh
John Ohrenberger
Cynthia Oliver
Carol Olson
Kathy Osman
Maddy Osman
David J. Ottolini
David Owens
Raymond Paiva
Liliana Palacios
Michael Palm
Deborah K. Palmer, Esq
Mary Panarello
Mike, Mel, Nick and Will
Panarello
Hye Young Park
Thomas and Kate Pearson
Kate Peck
Jeffrey and Kathleen Pelchat
Catherine Pelkey
Charlene Pell and C.H.
Frazier
Rosemary Pembroke
Peninsula Combined
Federal Campaign
John V. Pesich
George and Joanne Pessotti
Timothy Petracca
Judy L. Phillips
Kelly Philson
Andy Piercy
Paula Pittenger
Parnel and Mary Plante
Kenyelle S. Plummer
Lynn M. Podoski
Dana Potter
Faye Potts
Justina Powell
Sally Powell
Steve Powell
James H. Presley
Raphael Pristoop
Nancy M. Quigley
Kathy Raith
Sue A. Ramaglia, RN, BSN
Paul H. Ramponi
Sheryl Ramstad, RN
Barbara and Jim Rannazzisi
Ken Rapp
Taylor Rasley
Judith A. Rawnsley
Mark W. Raymond
Marybeth Reddy
Peter Redfern
Greg Reeves
Mary P. Reeves
Reg Richard Inc
Dawn and Carl Renzetti
Julie Reynolds
Mark M. Reynolds
Susan Reynolds
Rhode Island and
Southeastern
Massachusetts CFC
Rhode Island Good
Government PAC
Mark M. Ribera, Jr.
Karen and Reginald Richard
Anne M. Richardson
Bill Rietjens
Siena Riffia
Ruth Brubaker Rimmer, PhD
Tyler Risk
Max and Constance Roach
Bahram R. Roashan
Joseph Roberts
Missy Robinson
Cole Robinson
Robin Robinson
Katharina Rock
Laurie and Jeffrey Roderick
Linda M. Rogers
Elaine and Mike Rojas
Sharon Ross
Ross Tilley Burn Centre
Mikki J. Rothbauer, MSW
Terry T. Allen-Rouman
Michael Rubin
Steven J. Rudis
Gregory and Karla Runyon
Neil Runyon
Tara Ruscigno
Gayle C. Russo
Gina M. Russo and Steven
Sherman
Sierra Russo
Logan Rutherford
Cindy E. Rutter, RN, BSN
Tom Ryan
Saba Colman & Hunt PC
Marcia and Andrew Sabol
Sacramento Fire
Department
Susanna and Michael Salge
Saltz, Mongeluzzi, Barrett &
Bendesky, PC
Tracey Sanguinet
Amanda and Tylor Sardeson
Saskatchewan Professional
FireFighters Association
Burn Fund
Nicole A. Sautro
James Schafer
Laura and Jeffrey Scharf
Carmine L. Schiavone
Julie Ann Greif Schmidt
Kathryn A. Schmitt
Julie and Richard Schultz
David and Michele Schury
Samantha A. Scimeca
Lauren Sclafani
Vivian M. Scott
Scott’s Landscaping, Inc.
Maryann Seebeck
Cynthia J. Sekowski, PhD
Select Resources LLC
Kim Settles
Gautam Shah
Karl and Carol Sharicz
Aaron Shaw
Maxine Sheffield
Leatrice and David Shippee
Blake Shugarman
Silicon Valley Community
Foundation
Ricardo A. Siller
Adrene Silva
Danny Simkewicz
Sabrina Simpson
Doug and Pam Sitzler
Kimberly L. Slack
Michael and Cindy Sliwinski
Mary Sloan
Kayetta A. Slocum
Jeffrey A. Smidt
Keith W. Smiley
Donald J. Smith
Karen L. Smith
Irene Snyder
Rajiv Sood, MD, FACS
David P. Souza
John E. Sperle
Charles E. Sproul
Sandra Stabile
Tara Stackpole
Karl and Judith Stadler
Heidi K. Stennes
Thomas and Eva Sterley
Amy M. Stevens
Carol and Michael Stewart
Nicholas Stone
Todd A. Straka
Jay H. Strohl
Jim Sullivan
Patrick R. Sweeney
Nancy Swihart
Swiss-American Products,
Inc.
Tisha Taba, OT
Glen and Delores Tabron
Maureen Moriarty
Tamburro
Masaaki Tanaka and Noriko
Tanaka
Jennifer Tantillo
Eric Taylor
Diana Tenney and Gerard
LaPerriere
Marylyn L. Tesconi
Jennifer A. Tessitore
John R. Testoni and Olivia
Costa
The Guarantee Company of
North America
Karen and Timothy Thery
Brindha Thinakaran
Lynn and Heather Thomas
Joe Thuillier
Pat Thuillier
Theresa A. Thuillier
Dr. Christopher and
Simonida Thurber
Stephanie Toenges
Catherine A. Tomaso
Larry Tompkins
Torbot Group Inc - Jobskin
Division
Fresia Toro-Fuenzalida
Torrance Memorial Burn
Center
Joe and Santa Toscano
Total Contact, Inc.
Timothy and Carolyn
Travers
Christopher and Holly
Travis
Donald and Susan Trentel
Gary and Jean Tresch
Eunice F. Trevor
Alexander and Pearlie
Trotter
Rita M. Tully
Rodney A. Turner
Kenneth and Patricia
Umbarger
Kay and Steve Unguran
United Way of Rhode Island
Laurie Vago
Varnum LLP
Jose F. Ventura
Winfield L. Verdow
Steven P. Vieira
Barbara Vinacco
David Vogel and Ellen
Ezorsky
Beth Vosmeier
Luke Walder
Kim Walker
Eric Wall
Marlene M. Waller
Brian Walsh
JoBeth Walt
Karen Wandersee
Francesca Warburton
Tony Warnick
Jeremy Warriner
Sandra and William
Weinhardt
Kenneth and Tammy Welch
Jennifer L. Weller
Walter Wenzel
Scott and Mary Wheatley
Alayne White
Kelly and Michael White
Jennifer Whitestone
Ben Whitfield
Miriam J. Whiting
Edward and Diane Wiebe
Anastasia P. Williams
Essie Williams
Keith E. Williams
Mike E. Williams and Kelly
Ransdell
Ashley Wilson
Dawn Wilson
Brian J. Winters
John and Janet Wojtowicz
Amy Wood
Chris Woodcock
Woonsocket Fire
Department
Paul and Deb Worachek
Duane Wright and
Bernadette Martinez
Wright
Linda and Gary Wright
Barbara C. Yackel
Corazon M. Yee
Joseph and Sherry Yost
Ida Young
Robert Yount
Yourek Family
Sandra Yovino, RN
Charles Yowler, MD
James Zarella
Matthew Zeller
Jonathan Zielinski
Josh and Kim Zisa
Fred and Edith Zucker
Gifts-In-Kind
American Massage Therapy
Association - California
Chapter
NeoStrata
Mercury Head Gallery
Memorial & Tributes
IN MEMORY OF CHRISTY
CHRISTIAN
Holly Christian
IN MEMORY OF CARL
COUGHLIN
American Fire Sprinkler
Association
IN MEMORY OF JEAN
ELAINE IRWIN JOHNSEN
Joan and Scott Anderson
IN MEMORY OF DONNA
MARIE
Rita M. Tully
IN MEMORY OF IRIS Y.
MILLER
The Guarantee Company of
North America
IN MEMORY OF JACK
VANDENBURGH
Nicole A. Sautro
TRIBUTE TO DAVID AND
CARLY BOWERS
Philip and Ellie Coffman
Chuck and Rosemary
Dougherty
Diane Nelson
John V. Pesich
TRIBUTE TO PETER CLAVEY
Keith W. Smiley
TRIBUTE TO BENJAMIN
COMTOIS & COPYRIGHT
CLEARANCE CENTER IN
RECOGNITION OF THEIR
SON AND FRIENDSHIP
Kathryn L. Comtois
TRIBUTE TO BRIEN DEWS
Martha Campos
TRIBUTE TO RYAN
DOUGLAS
Vinod K. Jindal
TRIBUTE TO JOHN
FAIRBAIRN
David C. Hall
TRIBUTE TO JOANNE GRAY
Give With Liberty
TRIBUTE TO STEVE JOYNER,
SR.
Steven E. Joyner, Jr.
TRIBUTE TO BARBARA
KAMMERER QUAYLE
Beverly and Frederick
Chapman
TRIBUTE TO GARY KEITH
Lindsay E. Keith
TRIBUTE TO KENNETH
AND LINDSAY LEEBERG
wedding
Kenneth Leeberg
TRIBUTE TO MARY LUTZ
Brian M. Lutz
IN MEMORY OF BETTY LOU
WOJTOWICZ
Anonymous Donor
Eric and Brenda Clausen
Janet E. Edwards
Holly L. Ernst
Ben D. Jacobus
Shannon L. Jipsen
Miriam and Scotty
Lejonvarn
Marilyn D. Lodoen
Scaffold Service Inc
Julie Ann Greif Schmidt
Susan Stack-Johnson
Heidi K. Stennes
John and Janet Wojtowicz
Matthew Zeller
TRIBUTE TO JOHN O’LEARY
Northeast Georgia Health
System
IN MEMORY OF LORRAINE
DELINCK
Howard Delinck
TRIBUTE TO BILL VISNAW
Suzette Henley
TRIBUTE TO SURYA
PALANISAMY
Nithya Palanisamy, MD
TRIBUTE TO SANDY AND
DARYL PHILLIPS AND
PHILLIPS STEEL COMPANY
Barbara A. Kammerer
Quayle and Ken C. Quayle
TRIBUTE TO DAVE SLUYTER,
PAUL DAVIDOFF & MIKE
ANDERSON
TRIBUTE TO SARAH BAZEY
David Owens
TRIBUTE TO DONOVAN
WILLIAMS
David C. Hall
TRIBUTE TO KATHERINE
“KATIE” BOSTIC
Deborah L. Bostic
TRIBUTE TO ESSIE WILLIAMS
William F. Marsh, DDS
Judith A. Rawnsley
TRIBUTE TO MY SON
Marilyn Barlow-Oldrid
Be a Phoenix Champion all year long… Become a monthly donor today!
For less than $1 a day, you can give survivors and their families the peer support and tools needed to re-build their
lives. Your automatic monthly gift provides reliable support and the promise of a brighter future for survivors and
their families. Join today at www.phoenix-society.org/monthlygiving
PHOENIX CHAMPIONS - MEMBERS OF THE PHOENIX SOCIETY MONTHLY GIVING CLUB
Deborah L. Bostic
Anthony F. Burke and
Stacey Loen-Burke
Kerri Hanson
Tony Warnick
BENEFACTORS SOCIETY
Honoring individuals who have made provisions for the Phoenix Society within their estate plans or life income plans. Have you remembered The Phoenix Society?
Please let us know so we can include you in our Benefactors Society.
Anonymous
George Araujo
Sarah Bazey, B.A., OPM
Bruce Berger
Gary D. Boller Trust
Deborah L. Bostic
Alan and Delwyn Breslau
John P. Capanna
Antoinette M. Coppola
Suzanne, Jason, Eric, Lynne
& Kari DeLorenzo
Emma Freeland
Ira Gruber
Janet Harman, RN
Jay Heying
Patrick C. Horan
Barbara Kanegis
Rosanne Klass
Alan C. Kritta
Andrew Lee
Mike and Mary Lutz
Debra Woodliff
Christie and David McKnight Hugh R. Stewart
Gladys Vose
Wright/Martinez
Michelle Mercier
William and Sandra Weinhardt
Gail Miller
Family Trust
Humphrey Miller
Chris and Karen Noles
TOM & MARY HESSEL
Joanne Pessotti
Ken and Barbara Quayle
ENDOWMENT FUND
Gregory and Janice Roach
Sandra Rose
DEARBORN FIRE FIGHTERS
Cynthia Sekowski, Ph.D.
BURN DRIVE ENDOWMENT FUND
Julie Spiegel
Board of Directors
Officers
Patrick C. Horan, President
Burn Survivor and Volunteer
Sparta, NJ
Sarah Bazey, Vice President
Burn Survivor
Owner, Simplex Construction Inc.
Minneapolis, MN
Directors
Contact Information
Anthony F. Burke
Community Chapter Executive
American Red Cross
Serving Eastern South Dakota
Sioux Empire Chapter
Sioux Falls, SD
Amar Patel, DHSc, MS, NREMT-P
Director, Center for Innovative Learning
WakeMed Health & Hospitals
Adjunct Instructor
UNC School of Medicine
Raleigh, NC
Lorraine Carli
Vice President of Communications
National Fire Protection Association
Quincy, MA
Peg Paul
President, Peg Paul & Associates
Frankfort, IL
Donald Cheley
President, Cheley Colorado Camps
Denver, CO
Karen Colligan
Founder & Principal, PeopleThink
San Francisco, CA
William Leahy
President, New York Firefighters
Burn Center Foundation
New York, NY
J.R. Martinez
Burn Survivor, Military, and Actor
Studio City, CA
Vickie Pritchett, Secretary/Treasurer
Director of Public Fire Protection
National Fire Sprinkler Association
Pleasant View, TN
Timothy E. Sendelbach
TES2 Training and Education Services
FireRescue Magazine (Editor)
Las Vegas, NV
Jill Sproul, RN, MS
Burn Survivor
Nurse Manager
Regional Burn Center at Santa Clara Valley
Medical Center
San Jose, CA
Mike Williams
Investigator, Harnett County Sheriff’s Office
Vol. Firefighter, Northwest Harnett Fire Dept
Fuquay Varina, NC
The Phoenix Society, Inc.
1835 R W Berends Dr. SW
Grand Rapids, MI 49519-4955
Phone: 616.458.2773
Fax: 616.458.2831
Burn Survivors may call toll-free
1.800.888.BURN (2876)
Web Site: www.phoenix-society.org
E-Mail: [email protected]
Staff
Amy Acton, Executive Director
Sara Bruinsma, Administrative Assistant
Amy Clark, Program Consultant
Megan Geerling, Development Director
Kerri Hanson, Office Manager
Jess Irven, Youth & Family Program Contractor
Jeanne LaSargeBono, Business Director
Pam Peterson, Program Director
Tammy VanMeter, Database Coordinator
Karen VanSprange, Administrative Assistant
Susan Wise, Administrative Assistant
Megan Yankee, Development Associate
Note: The Phoenix Society does not endorse products or services, but is
committed to providing information as it relates to the burn community.
Trish Acton, Phoenix Burn Support Magazine
Layout & Design
Maureen Kalil, Phoenix Burn Support Magazine
Editor
Burn Support Magazine is published by the nonprofit organization, The Phoenix Society, Inc. ®
1835 R W Berends Dr. SW | Grand Rapids, MI 49519-4955 | Printed in USA | © Copyright 2014 | ISSN 1544-1857
Non-Profit Org.
US Postage
PAID
Grand Rapids, MI
Permit No. 679
The
Phoenix
Inc.
1835 RW
BerendsSociety,
Dr. SW
1835 RW Berends Dr. SW
616.458.2773 | 1.800.888.2876
fax: 616.458.2831
616.458.2773 | 1.800.888.2876
www.phoenix-society.org
fax: 616.458.2831
[email protected]
[email protected]
We’ve Launched
Our New Website!
Our community now includes more than 48,000 burn survivors, their
loved ones, medical professionals, and fire service members—plus
supporters like you! There are always new stories to share and more
people seeking information about life as a burn survivor. That’s why
we launched a new website, with more resources, stories, and ways to
connect with peers.
We hope you find the new site exciting, with helpful resources and a
compassionate place to get connected to others in the burn community.
With the launch of the new website comes a number of new and enhanced
features including:
•NEW resources and information for burn survivors and their families,
including The Journey Back e-book
• A NEW website-integrated Burn Community Blog
• A NEW Monthly Giving Option, as well as the opportunity to manage
your online contributions and track your personal online giving history
• Phoenix Connect, our online community—the secure home of
weekly Peer Support Chat, Survivor Stories, and Blog comments,
as well as the NEW online Forum, where you will be able to ask
questions and find information

Burn Support Magazine

Transcription

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