Clinical Trials Yield Exciting Potential for Future Applications Clinical

Transcription

A PUBLICATION OF THE CANADIAN SPINAL RESEARCH ORGANIZATION
Spring 2007 VOLUME 14, ISSUE 2
CSRO
MAGAZINE
Visit the CSRO website at www.csro.com
Note for next is
sue: it goes from
Vol. 13 to 14
Clinical Trials Yield Exciting Potential
for Future Applications
Champs For A Cure
Long Term Volunteers Recognized
for Phenomenal Dedication
A Dynamo TEAm!
Snaps to Stellar Volunteer Duo,
Richard and Jean Fraser
CSRO Events
Summer & Autumn Success!
After and Beyond®
Refined Resource Manual a Hit at
Spinal Cord Injury Conference
IMPROVING THE PHYSICAL QUALITY OF LIFE OF THE SPINAL INJURED THROUGH TARGETED MEDICAL & SCIENTIFIC RESEARCH
Serious Injury
Committed
Legal Counsel
Optimum
Results
AYLESWORTH
B AR RI ST E R S
&
LLP
S O L IC IT O R S
CLIENT FOCUSED - SINCE 1861
G. Joseph Falconeri
G. Joseph
Falconeri
Tel: 416-646-8367
/ [email protected]
Tel:
416-646-8367
Ismail
Barmania
Tel: 416-777-4016
/ [email protected]
[email protected]
Barry Barmania
J. Munro
Ismail
Tel: 416 933-3838 / [email protected]
Tel: 416-777-4016
Bryan D. Rumble
[email protected]
Tel: 416 646-8369 / [email protected]
The Aylesworth Team of Personal Injury Litigators has years of
experience in assisting victims of serious personal injury, in dealing
with medical and rehabilitation professionals, and in navigating the
legal system.
The Aylesworth Team has an excellent reputation built upon years
of successful and effective representation of claimants through
negotiated settlement, mediation, trial and appeal.
At Aylesworth there is no charge for the initial consultation.
P.O. Box 124, 18th Floor, 222 Bay Street
Toronto, Ontario M5K 1H1 Tel: 416-777-0101
www.aylesworth.com
www.personalinjuryontario.com
WINTER 2007
Chairman’s MessageWINTER 2007
Dear friend,
This is an exciting time for spinal cord research. Many of us
consumers that have been injured for more than 15 years can
attest to the great advancements that we have seen in neuroscience research, specifically in spinal cord injury research.
On Our Cover: What does the future hold
for Fampridine-SR as it relates to spinal
cord injury? See our page 4 feature story
for the latest update.
IN THIS ISSUE…
3 . . . Chairman’s Message
4 . . . Eyes on the Future
. . . Fampridine-SR
6 . . . Optimum Support…
. . . Optimum Points!
SPECIAL INSERT:
7 . . . A Dynamo TEAm!
7 . . . Champs For A Cure
8 . . . After & Beyond
. . . Manual Make-Over
9 . . . Edition Three Mobilized
10. . . Summer & Autumn
. . . Events
CSRO Magazine is a publication of the
Canadian Spinal Research Organization.
120 Newkirk Rd., Unit 2
Richmond Hill, ON, Canada L4C 9S7
(800) 361- 4004 • (905) 508- 4000
www.csro.com
The CSRO is a federally registered charity.
R #119159515RR0001
© No part of this publication may be
reproduced without the written
permission of the CSRO.
Canada Post sales agreement #40051430
CSRO Magazine is published by
The importance of
volunteers to helping
us fulfill our mandate
of raising research
funds cannot be
emphasized enough.
We are pleased to
honor a few of these
individuals as our
Champions For A Cure.
The most recent organization of clinical trial networks tells us
that we are on the eve of seeing significant breakthroughs that
will improve quality of life for people with spinal cord injuries.
One such example is our own Fampridine-SR drug (formerly
known as 4-aminopyridine) which has had significant success
and is getting very close to achieving regulatory approval. I invite
you to read inside to learn more about the progress and success
of Fampridine-SR.
I cannot state enough how important individuals are who have
helped the Canadian Spinal Research Organization (CSRO)
fulfill its mandate of raising funds for research. In this edition
of the magazine, we have singled out and recognized exceptional volunteers for their long term volunteer commitment.
They are our Champions For A Cure. I invite you to learn more
about our Champions and encourage you, the reader, to also
become a Champion For A Cure.
Also inside is our premiere issue Shoot For A Cure Magazine.
This special first annual edition, represents the three distinctive
streams of the CSRO’s Shoot For A Cure (SFAC) campaign:
SFAC Hockey, SFAC Curling and SFAC Moto-Sport. The
publication provides reports of events and relates stories about
our friends, consumers, partners and key sponsors. Important
updates about our Play It CoolTM prevention program and spinal
cord injury research and fundraising efforts are also included to
provide you with, what I hope will be, an enjoyable read!
Sincerely,
Tryad Publishing Inc.
For advertising rates, call toll free 1-877-319-4599
Paul E.F. Smith
Barry Munro
Copy Editors Greg Delaine/Tina Winberg
Creative/Design Tracey W. Fleming
Publisher
Editor
Contributing Writers
Ivana Djordjevic/Jacqueline Cooper
Barry Munro
Large Cover Image provided courtesy of
Acorda Therapeutics®
Peter N.F. Smith
Office Manager Barbara West
Production Assistant Doris Walter
Barry Munro, BA, LLB
Chairman
Canadian Spinal Research Organization
Manager Accounting
Printing
Warren’s Imaging & Dryography
Toll Free: 1-800-820-7702
Spring 2007
•
CSRO MAGAZINE
3
FEATURE STORY
THE FUTURE OF
FAMPRIDINE-SR
Cultivated under the mandate of developing treatments specific to spinal cord
injury and related neurological disorders, Acorda’s Fampridine-SR holds exciting
implications for many conditions affecting the brain and nervous system.
By J A C Q U E L I N E C O O P E R
W
When looking back, March 1995 signified
a watershed moment in the battle to find
a cure for spinal cord injuries. For it was
then that Dr. Ron Cohen founded the
privately held biotech company called
Acorda Therapeutics Inc. Acorda was
the first company to operate under the
mandate of developing treatments specific to spinal cord injury (SCI) and
other related neurological disorders.
Now, just over a decade later, the
(CSRO) proudly reflects on the tremendous progress that has been made. We are
even more pleased to announce the latest
breakthroughs with Fampridine-SR. In
September of 2006 Acorda announced
the success of Fampridine-SR in Phase 3
clinical trials involving patients with
Multiple Sclerosis (MS). The subjects who
received treatment with the drug showed
increased walking speed, five times
greater than that of the control group.
4
CSRO MAGAZINE
•
Spring 2007
When questioned about the drug’s ability to restore function in individuals with
SCI, Dr. Andrew Blight, Executive Vice
President for Research and Development
at Acorda stated, “Despite the fact that our
Phase 3 trials of Fampridine-SR in SCI did
not achieve statistical significance, we
continue to believe that the drug probably still holds some promise for people
with that condition. We would consider
additional trials of Fampridine-SR in SCI
in the future, but our top priority is to get
the drug through FDA, and MS is our
best option for that.”
The damage to the spine that is present
in people with MS and those with a SCI
is similar. In both cases, the myelin, which
insulates nerve cells, and allows for the
transmission of messages is absent. As a
result, many parallels exist between the
functional deficits experienced by those
with MS and those with a SCI. Common
symptoms of both conditions include dif-
ficulties walking, spasticity, and loss of
bowel and bladder control. Though some
aspects coincide, one of the main differences between the two conditions lies in
how the damage occurs. In MS the body’s
own immune system attacks the myelin
and is responsible for the chronic degeneration of the tissue. Whereas, with a
SCI, the injury is acute, occurring from
physical trauma. Despite the difference
in causation, the end result is shared:
without myelin, potassium channels
remain open and allow the leak of potassium molecules out of the nerve cell. As
long as this leakage occurs, the nerve will
remain unable to transmit messages.
(Please see figures 1 and 2 for an illustration of this concept).
Moving forward, after discussions with
the FDA, Acorda plans to begin a second
Phase 3 trial evaluating the efficacy of
Fampridine-SR in patients with MS.
Further development of Fampridine-SR
Anita Kaiser
Research Chair Recognized
It is always deeply satisfying when one witnesses good things
happening to good people...
Anita Kaiser is an incredibly special
individual, and on November 29th,
of last year something truly marvelous happened for her; the Toronto
Rehabilitation Institute selected her
as a recipient for their Scholarship in
Rehabilitation-Related Research for
Graduate Students with Disabilities.
In receiving the award Anita will be
granted $20,000 to assist with academic expenses, as well as funding to help alleviate the added
disability related costs of attending graduate school. This is meaningful because it helps to eliminate the obstacles that still exist in
society for those with disabilities. The significance of this scholarship was not lost on Anita.
[1] Fampridine-SR’s major action is to block specialized potassium
channels on axons.
[2] It is these exposed channels that “leak” potassium ions, causing
the axon to “short circuit.” By closing the exposed potassium
channels, Fampridine-SR permits the axon to transmit impulses
again, even in a demyelinated state.
Images provided courtesy of Acorda Therapeutics®
is not just exciting to those with invested interest in the treatment
of spinal injuries, but also to those dealing with other neurological
disorders. For the potential applications of this drug are incredibly
broad. Many of the mechanisms involved in secondary tissue damage and potential repair in MS and SCI are common with other disorders of the central nervous system, especially stroke and traumatic
brain injury.
Any therapy that:
• Helps to protect the spinal cord from the consequences of injury
• Facilitates the regeneration of neural connections
• Encourages the remyelination of neurons
• Optimizes the function of surviving structures in the spinal cord
holds promising implications for many conditions affecting the
brain and the rest of the nervous system. As such, Fampridine-SR
represents an incredibly exciting development for a multitude of
people with neurological deficits or disorders.
Anyone who would like to inquire about the results of the most
recent studies conducted by Acorda, or who would like to be added
to the mailing list so as to be kept abreast of the company’s future
developments can call 1-877-223-5212, toll-free, weekdays from
10:00am to 5:00pm ET.
“By creating this scholarship, Toronto Rehab and TD Bank are
sending a very powerful message that students with disabilities
can make a valuable contribution to research,” says Anita “They
are also saying that individuals with disabilities have an important role to play in society.”
Anita is currently completing her Master of Science degree in
Rehabilitation Science through the University of Toronto. Her
thesis focuses on the issues of parenting with a spinal cord injury,
and specifically looks at the use of assistive devices. One of the
purposes of her work is to gain insights on the experiences and
challenges facing parents with a spinal cord injury. It is her hope
that her research will help increase the level of care they receive
from health care professionals as well as improve the assistive
technologies and devices that are available to them.
Anita always wanted to go into the field of rehabilitation.
Originally, she planned on becoming a physiotherapist or chiropractor after completing a Bachelor of Science degree in Applied
Chemistry and Biology at Ryerson University, but after a car accident in 1996 left her paralyzed from the chest down, she turned
her focus to rehabilitation research.
Her PhD work will be an extension of her master’s thesis and will
address the health care needs of pregnant women and mothers
with a physical disability. It is Anita’s intention that this research
will help to develop a service delivery model that can better meet
the specific needs of this patient population.
In addition to being a student, Anita has been a research assistant at Toronto Rehab’s Lyndhurst Centre for the past five years.
In that time, she has had the opportunity to work on several different research projects, has written over 20 articles and attended
numerous conferences to present her team’s research.
Furthermore, Anita has been an active CSRO Board Member and
currently sits as the Chair of the Research Committee here at the
Canadian Spinal Research Organization (CSRO). Beyond this
extensive accolade of accomplishments, Anita is a hardworking
and warmhearted individual.
We at the CSRO are pleased to congratulate her on her latest
achievement. We feel both proud and lucky to have her on our
team and are excited to bear witness to her future endeavors.
Spring 2007
•
CSRO MAGAZINE
5
FRIENDS OF THE CSRO
Optimum Support…
Optimum Points!
By I V A N A D JO R D J E V I C
Have you heard about this interesting and unusual way of helping us
achieve our goal of finding a cure
for paralysis?
If you are reading this magazine, it is likely because you have
supported the Canadian Spinal Research Organization (CSRO)
in the past. While we would like to take this opportunity to
thank you for your generous support, we would also like to
share with you an alternate method of helping us raise money
for our research projects. Donations can now be made to the
CSRO through Shoppers Optimum PointsTM.
The CSRO continues to be a part of the Shoppers Optimum
PointsTM Donation Program, which means that if you are a
Shoppers Optimum MemberTM you can choose to donate your
Shoppers Optimum PointsTM to us.
Donating your Optimum Points to the CSRO is easy: simply
visit www.shoppersdrugmart.ca/donate and follow the instructions.
Your Independence,
Our Solutions
By donating your Optimum Points to the Canadian Spinal
Research Organization, you will be helping our fundraising
efforts. The CSRO redeems donated Optimum Points in any
Shoppers Drug Mart Store in order to purchase items that are
used as prizes at our fundraising events. This helps reduce event
costs, thus resulting in more money which can, in turn, be used
to support spinal research projects.
Wheelchairs & Seating
• Vehicle Conversions &
Van Adaptations
• Porchlifts, Stairlifts &
Home Elevators
• Bathroom Safety Products
• Incontinence & Urinary
Supplies
• Aids to Daily Living
What if you are not a Shoppers Optimum MemberTM? No problem! The enrollment procedure is simple! All the necessary
forms are available at www.shoppersdrugmart.ca, as well as in
any Shoppers Drug Mart store, located across Canada.
Call 1-800-SHOPPERs or visit us at
www.shoppershomehealthcare.ca to
find a store near you.
We are extremely pleased with the generosity individuals have
shown through this program in the past! However, we would
still love to see the program grow!
With so many people working so hard, the dream of finding a
cure for paralysis will one day be a reality. Donating your
Shoppers Optimum PointsTM is just one more way you can help
bring us one step closer! You are just a few clicks away!
If you have any questions regarding this program, contact our
office at 905-508-4000 or toll free at 1-800-361-4004.
6
Image Copyright 2000, Invacare Corporation. All rights reserved.
CSRO MAGAZINE
•
Spring 2007
•
is now part of
Shoppers Home Health Care
S P E C I A L P R E M I E R E I S S U E >> A N I N T R O D U C T I O N T O S H O O T F O R A C U R E
[ SHOOT FOR A CURE MAGAZINE, THE ANNUAL 2007 ]
www.shootforacure.org
Working with the Hockey, Curling & Moto-Sport Communities to Reduce Spinal Cord Injury & Raise Funds to Cure Paralysis
YOU’LL FIND INSIDE >> Volume 1 Number 1:
SFAC Team Profiles >> Play It CoolTM Campaign
Legends of the Game Hockey, Fishing & Golf
Fundraising Events Update >> And Much More!
T H E N E X T G E N E R AT I O N O F H O C K E Y M A G A Z I N E S
Visit 29sports.com
Informative-Educational-Interactive
Proud Supporters of
Get your FREE online trial today - 29sports.com
YOU’LLFIND INSIDE
IN THIS ISSUE:
14
22
Shoot For A Cure Magazine is a publication
of the American Spinal Research
Organization (ASRO) and the Canadian
Spinal Research Organization (CSRO).
20
Chairman’s Introduction
Dear Friend,
It has been over seven years since our Shoot For A Cure
(SFAC) Campaign was launched. During this time we have
raised over $2.5 million.
We are very excited about the ongoing expansion of our
campaign throughout the whole hockey community and
through the curling and moto-sport communities as well.
Due to the expanding amounts of information surrounding
this unprecedented growth, we decided to create this stand
alone issue of Shoot For A Cure Magazine. This will convey
all of the latest campaign news to those familiar with the
campaign and to our newer friends as well.
As you will see inside, the SFAC campaign has grown
immensely over the years and now includes many new team
members. With this expansion, we have been able to fund
valuable research for a cure and create our spinal cord injury
prevention program, Play It CoolTM.
I invite you to read more about our campaign and join our
team and help us Shoot For A Cure!
12
TABLE OF CONTENTS
3
CHAIRMAN’S INTRODUCTION
4
SFAC CREW
Meet our in-office team!
5
FIRST-CLASS FLAME
Jarome Iginla remains an active
figure for SFAC
7
“PRIMO” ASSIST
Keith Primeau, friend of SFAC
8
THANK YOU FRIENDS
SFAC’s corporate sponsors
9
CHEERS FOR VOLUNTEERS!
Recipients of the inaugural
SFAC Volunteer Recognition Award
10
SAFETY CHECK
Play It CoolTM News & Updates
12
SOURCE OF SUPPORT
A overview of the many exciting
Source For Sports/Shoot For A Cure
fundraising initiatives
14
EVENTS UPDATE
16
TOTAL TEAMWORK
Raffi Torres’ golf tournament
17
ANCHORS TO ACES
Legends of the Game fishing and
golf fundraisers
Jacqueline Cooper / Chris Lomon
Barry Munro / Jacqueline Uram
19
FUNDS & GAMES
Legends Classic Tour a success
Manager Accounting Peter N.F. Smith
20
DRIVE TO OVERCOME
Jonathan Dehaas, an athlete
with singular strength of spirit
22
WHEELCHAIR CURLING ROCKS!
About SFAC Wheelchair Curling
23
GOALS & RESEARCH
It’s not a matter of IF, but WHEN
American Spinal Research Organization
1623 Military Rd., #271
Niagara Falls, NY, U.S.A. 14304-1745
(800) 361- 4004
www.asro-online.org
120 Newkirk Rd., Unit 2
Richmond Hill, ON, Canada L4C 9S7
(800) 361- 4004 / (905) 508- 4000
www.csro.com
The ASRO is a non-profit 501(C)(3)
Corporation
The CSRO is a federally registered charity.
R #119159515RR0001
©
No part of this publication may be
reproduced without the
written permission of the ASRO/CSRO.
Canada Post sales agreement #40051430
Shoot For A Cure Magazine is published by
Tryad Publishing Inc.
For advertising rates, call toll free
1-877-319-4599
Publisher Paul E.F. Smith
Editor Barry Munro
Copy Editors Tina Winberg
Creative/Design Tracey W. Fleming
Freelance Photoshop Artist
Trevor Somers
Contributing Writers
Sincerely,
Office Manager Barbara West
Production Assistant Doris Walter
Printing
Warren’s Imaging & Dryography
Toll Free: 1-800-820-7702
Barry Munro BA, LLB
Director, American Spinal Research Organization
Chairman, Canadian Spinal Research Organization
www.shootforacure.org / SFAC MAGAZINE
3
TEAMPLAYERS
SFAC
POSSE
AT THE GOLF COURSE, HOCKEY RINK OR OFFICE, LOOK FOR THESE FACES AND SAY “HELLO!”
PHOTOS:
Top row, left to
right >>
Laura Smith,
Event Manager
Jacqueline Uram,
Manager of
Community
Development &
Public Relations
Kerry Goulet,
Player Relations
Bottom row, left
to right >>
Trevor Jackson,
SFAC Program
Director
Wayne Archibald,
Manager of
Events & Special
Projects
Lisa Laviolette,
Office
Administrator
Trevor Jackson, SFAC Program Director: “I was
introduced to the CSRO and the Shoot For A Cure
(SFAC) campaign in October 2002 when I began
as an intern. After graduating from the Durham
College Sports Administration program in June
2003, I was hired as a Program Co-coordinator.
Today, I oversee the SFAC Program where I serve
as Program Director. As an avid sports enthusiast I love the vision of SFAC! It is a pleasure to
work with the great team at the CSRO, as well as
the corporate clients and individuals that help
us day in and day out raise funds for spinal cure
research. Finally, it is deeply satisfying to work
for a national organization that makes a difference in the lives of so many people.”
[email protected]
1-800-361-4004 ext. 227
Kerry Goulet, Director of Player Relations:
“In 2001, I attended a golf event and was introduced to SFAC through Barry Munro and Trevor
Jackson. As I learned more about the cause, I
immediately offered my efforts up to these two
fantastic individuals because I could see the
passion and dedication. My personal friend,
Robert Vielfaure from Winnipeg, suffered a
career ending injury 30 years ago and I witnessed the transformation of not only Robert’s
life but also that of his entire family and friends.
It is a great honor to be part of such a phenomenal team and to be a part of a national charitable organization that makes a difference.
Currently, I act as the Pro Player Rep for SFAC
and am very excited about the future!”
[email protected] / 416-828-2929
4
SFAC MAGAZINE / www.shootforacure.org
Wayne Archibald, Manager of Events & Special Projects: “As part of the CSRO
team for the past 8 years, I have assisted with the development of the SFAC campaign. My current position allows me to assist with graphics, marketing material
and event management. Being an avid hockey player and fan all my life, I understand the benefit of empowering the hockey community with the information that
the SFAC campaign offers. Having witnessed its beginnings, I am both proud and
excited to be a part of the development and success of the campaign.”
[email protected] / 1-800-361-4004 ext. 226
Jacqueline Uram, Manager of Community Development & Public Relations:
“After graduating from The University of Western Ontario, I received a diploma in
Sport and Event Marketing at George Brown College. A large component of the
program was volunteering in the sport and event industry, and through this I was
introduced to SFAC, which provided the best learning experience I could have
anticipated. So, when they asked me to join the team, the decision was an easy one.
I am thrilled that in my current role I am able to combine my passion for sports,
community involvement, and communications while also helping others.”
Laura Smith, Event Manager: “I started with SFAC during the internship component of the Durham College Sport Management program I was enrolled in. For two
years, I worked as an intern at SFAC. Then in 2006, after the completion of my college program, I was brought on the team to work full-time. As the Event Manager,
I am responsible for scheduling and execution of the various fundraising events.
SFAC is such an amazing organization because all of the people who get behind
the cause. It is more like a family than an organization. I love it!”
Lisa Laviolette, Office Administrator: “I joined the CSRO in November 2006 as
an Office Administrator. After graduating from Seneca College with a background
in accounting, I worked for five years as a business owner developing entrepreneurial
talent and people skills. I also have volunteer experience with the Canadian Cancer
Society as a life changing experience brought me there. The CSRO promotes a very
good cause, I feel proud to be part of an organization that is benefiting so many
people. We have a great team who are all passionate about what they do.”
TEAMPLAYERS
First-Class FLAME
JAROME IGINLA REMAINS AN ACTIVE FIGURE FOR SFAC.
While Jarome Iginla
might perceive them as
simple gestures, they are anything but that to those affiliated
with Shoot For A Cure (SFAC).
Iginla, the undisputed leader
of the Calgary Flames, sees his
commitment to the community
and ongoing support of spinal
cord research as “not a big
deal.”
But they speak volumes
about the character of a man
who also happens to be one
of the National Hockey
League’s elite citizens.
The forward, who is closing
in on 600 career points, has
seen the devastating effects of
neck injuries. He watched a few
years back as then-teammate,
defenceman, Steve Smith, lay
motionless after an accidental
collision with a teammate.
“It plays in my head thinking
that it could happen to me or
someone I know,” said Iginla. “I
wake up every day and thank
God that I’m very fortunate.
Not that I’m lucky enough to
be playing in the NHL, but that
I’m healthy and have plenty to
be grateful for.”
Jarome’s genuine modesty
makes his actions that much
more endearing. “It’s really no
big deal,” said Iginla, spokesperson for Shoot For A Cure. “I
was touched by what the
campaign is doing. When they
made their presentation, I
couldn’t help but be inspired
by their efforts. They are doing
a wonderful thing.”
Iginla, who was named the
2004 recipient of the NHL
Foundation Player Award for
his commitment to charitable
endeavors, was also motivated
to help because of his relationship with Aaron Moser, a
young man who was paralyzed
after a hockey injury during his
junior career. It is a kinship that
has developed over the years
after Iginla met Moser during
one of the Flames’ visits to
local hospitals.
But as Iginla will tell you, it’s
not always easy to deal with
those doses of reality. It sometimes requires great restraint
not to show emotion when
he’s face-to-face with someone
who is struggling to cope with
a serious illness or injury.
SHOOT FOR A CURE
IS THANKFUL TO
BE ONE OF THE
CHARITABLE
CAUSES THAT IS
GENEROUSLY
CHAMPIONED BY
JAROME IGINLA
BOTH ON AND OFF
THE ICE.
Iginla has learned the fewer
words he speaks, the better.
“For me to tell someone that
I know what they must be going
through would be absolutely
wrong,” said Iginla, a recipient
of the 2004 Ralph Spadafore
Memorial Volunteer Recognition
Award. “The more you listen to
someone, the better it is. You
learn a lot about yourself just
by hearing what someone
else has to say.”
“When you see a player go
down with a neck injury like
Steve did, it hits you hard.
Hockey is about winning, but
whether it’s a teammate or an
opponent, you just hope for
the best. When Steve went
down, I just remember saying
a prayer that he’d be okay. It’s
all you can do.”
To this day, Iginla, despite
demands on his personal time,
By >> C H R I S L O M O N
remains an active figure for
SFAC, including donating his
efforts to the filming of SFAC’s
Play It CoolTM videos, as well as
garnering the support of fellow
NHL players for the program.
“We are thankful that Jarome
has included us as one of his
primary charitable causes of
which he champions both on
and off the ice,” said Barry
Munro, Chairman of the
Canadian Spinal Research
Organization. “As a recipient
of the 2004 King Clancy
Memorial Trophy, it is clearly
evident he is an admirable
role model within the community. We are thankful that he
considers Shoot For A Cure
among the charities to which
he grants his patronage.”
A commitment No. 12 continues to put his heart and soul
into.
PHOTOS:
Above >> Bill Zapf,
Jarome Iginla and
Brett Pierce at the
filming of a Shoot
For A Cure public
service announcement.
Below >> Barry
Munro proudly
presents Jarome
Iginla with the
Ralph Spadafore
Memorial Volunteer
Recognition
Award.
5
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6
TEAMPLAYERS
“PRIMO”Assist!
KEITH PRIMEAU LENDS GENEROUS SUPPORT TO SFAC.
Although his impact
on the ice is what his
name is most associated with,
Keith Primeau’s off-ice contributions are just as significant.
For 15 NHL seasons, Keith
Primeau, who recorded 619
career points, was the definitive professional, a player that
made a difference inside and
outside of the arena.
Unfortunately, the forward
who suited up with Detroit,
Hartford and Philadelphia over
his NHL tenure, was forced to
retire on September 14, 2006,
due to lingering post-concussion symptoms. Primeau, who
retires as a two time NHL AllStar Game participant, member of the 1998 Team Canada
Olympic Team and veteran of
128 career NHL playoff games,
is what every athlete should
strive to be.
“Keith knows only too well
the importance of our program
and the promotion of safe
hockey through the reduction
of neurotrauma injuries in the
game,” said Barry Munro,
Chairman of the Canadian
Spinal Research Organization.
“On and off the ice and even
following his retirement, Keith
is a leader. We are grateful for
his support and leadership.”
Fury Hockey, the title sponsor of the annual Shoot For A
Cure (SFAC) golf tournament
which is hosted by Keith, has
been a generous supporter of
SFAC over the past three years.
Primeau helped start Fury
Hockey (furysports.com) which
was recently purchased by
Crocs (crocs.com).
The prestigous Legends Golf
Classic, another SFAC event,
has raised more than
$85,000 over the past three
years. Keith and Lisa Primeau
have dedicated numerous time
and energy in soliciting celebrities and obtaining items for the
raffle, prize and silent auction
tables.
“Keith and Fury have been
great supporters of our Shoot
For A Cure campaign over the
past few years,” noted Munro.
“They have supported our
fundraising events and Keith
has made personal appearances on our behalf, both in
Canada and the U.S.”
“I think it’s important that
people make a difference in
whatever way they can,” said
Keith, whose brother, NHL
player, Wayne, is also a SFAC
ambassador. “Throughout the
years, I’ve come to learn that
hockey players are always will-
KEITH PRIMEAU
AND FURY HOCKEY,
TREMENDOUS
SFAC SUPPORTERS,
HAVE ASSISTED IN
RAISING FUNDS
AND AWARENESS
THAT HELP
REDUCE INJURIES
IN THE GAME.
By >> C H R I S L O M O N
ing to lend their time and
efforts to a worthwhile cause.”
“When we first approached
Keith and let him know that
we would like him to be cochair of the campaign, he was
thrilled and honoured” commented Trevor Jackson, SFAC
Program Director. “Whenever
we need him, he comes open
hearted. Keith is excited to be
a part of the SFAC campaign,
especially the Play It CoolTM
program that targets neurotrauma, which forced him to
leave the game prematurely.
Keith, we wish you and your
family the best in your retirement. We look forward to your
input, leadership and guidance
in helping eliminate and reduce
injuries in hockey. We welcome
you to the team and Shoot For
A Cure family. Thanks for the
continued support!
PHOTOS:
Above >> Primeau
getting in position
to score at 2006
Philadephia Flyers
game.
Below >> Keith
showing his talent
at the 2005 Fury
Golf Classic with
an energized
audience
7
TEAMPLAYERS
Thank You,
FRIENDS
INC.
8
Shoot For A Cure would like to recognize their invaluable relationships with the following partners. Without
the resolute support of these friends, we wouldn’t come
close to achieving our goals.
TEAMPLAYERS
FOR THEIR HARD WORK AND COMMITMENT, SHOOT FOR A CURE
RECOGNIZES SOME OF ITS MOST DEDICATED FRIENDS WITH THE
INAUGURAL VOLUNTEER RECOGNITION AWARD.
By >> J A C Q U E L I N E C O O P E R
CHEERS for
Volunteers!
PHOTOS:
Above >> Paul
Cinelli (at right)
with Jean Beliveau
and Stanley Cup
at the 2005
Frameworth
Celebrity Golf
Classic
Right >> From left,
George Brown
students Megan,
Naomi, Jean,
Sarah, Erin and
Heather
Below >> More of
the George Brown
students who
generously gave
time to SFAC.
From the left is
Mike, Rachael,
Amy, Alexis,
Shaun and Jackie.
This year marks the first time that an award will be presented specifically on
behalf of the Shoot For A Cure (SFAC) campaign to parties whose passion for the
cause has been asserted through their
exceptional acts of dedication.
PAUL CINELLI
The first individual we would like to recognize is Paul Cinelli, whose commitment to
community service is unbelievably admirable.
As a full time teacher and father of two, free
time is something that is in short supply for
Paul. Yet, for the past three years Paul has
made SFAC a priority in his life.
“It feels good to be part of such a worthwhile cause, working toward something that
will change people’s lives,” says Paul. When
asked what drives him to come out and help at events, Paul responded, “Volunteering with SFAC
isn’t work at all; it’s an honour and an inspiration to be around the people in this organization.”
The warm feelings are mutual! SFAC feels tremendously fortunate to count Paul as part of the team.
Without people like him we couldn’t accomplish our goals. Thank you, Paul for all your hard work!
THE STUDENTS OF GEORGE BROWN COLLEGE
The second recipient of the inaugural 2006 Shoot For A Cure Volunteer Recognition Award is a
group of students from George Brown. The college has a Sport and Event Marketing postgraduate
program which requires its pupils to shadow an organization through the planning and execution
of a major event. This group of students chose the 2005 Legends Hockey Tour and through the
experience became familiar with the SFAC campaign.
Inspired by the cause, the group made an extraordinary effort to build on the relationship by
coming out to volunteer at a number of events, as well as choosing SFAC as the benefactor of both
a golf and hockey tournament which they planned independently. Both of the events were run
beautifully, raising over $7,000!
With the hard work and focus demonstrated by this incredibly talented group, it’s no surprise that,
upon the completion of their program, many have secured exciting positions working for professional sports teams or within nationally based Olympic programs. We wish all of them the best of luck
as they embark on their careers, and look forward to maintaining our newfound friendships!
9
PLAY ITCOOLTM
Hockey is a fast paced, explosive game that involves a tremendous amount of physical play.
With that said, the ability to deliver and receive a good clean check is one of the basic skills of
the sport. Yet, the development of that particular skill is often not allotted the same attention as some
of the other fundamentals such as skating, passing or shooting.
Statistics show that almost every week during the regular hockey season a player, be it an amateur or professional, suffers a serious spinal injury. Awhile ago, those involved in the Shoot For A Cure
(SFAC) campaign recognized the dire need to take action in an attempt to curb this disturbing trend.
In response, a program called Play It CoolTM was developed. Play It CoolTM is an innovative initiative
that is focused on increasing the prevention and awareness of spinal cord injuries and other forms
of neurotrauma (i.e. concussions) on the ice.
So, while the motivation to create the program was most definitely driven by the desire to prevent
spinal injuries from occurring on the ice, Barry Munro, Director of the ASRO and Chairman of the CSRO
makes clear that, “The philosophy is really about
TM
skill
enhancement.” The initiative seeks to make
PLAY IT COOL, AN INITIATIVE OF THE SFAC CAMPAIGN, STRIVES
hockey a safer game by equipping young playTO INCREASE PREVENTION AND AWARENESS OF SPINAL CORD ers with seven essential skills designed to help
INJURY AND OTHER FORMS OF NEUROTRAUMA ON ICE.
improve their game while also keeping them
safe. Using the Internet as a supplemental teachBy >> J A C Q U E L I N E C O O P E R
ing tool, the program is designed to simplify and make easy implementation for the coaches.
This summer saw the launch of Play It CoolTM. In mid-July thirty coaches from across Ontario showed
up for an orientation session that signified the kick-off of the pilot project. The 30 coaches involved
were given both on ice and in classroom training, supplemented by online group facilitations, which
functions as an ongoing support system for the coaches throughout the season.
So what makes this program different from other initiatives? One of the distinguishing components of the Play It CoolTM program is the role of the Ambassador. The Ambassador is an individual who
has suffered a spinal cord injury while playing hockey; it is their responsibility to instill in the young
players the importance of safe and respectful play.
Travis Colley-Zorrilla was selected to be the Ambassador for the Play It CoolTM pilot project. Travis
suffered his injury during a highschool hockey game when he slid headfirst into the boards after tripping while scoring a goal. Now, confined to a wheelchair Travis has happily accepted the role of
Ambassador so that he can do his part to help prevent others from experiencing the same fate on
10
the ice. Travis’ involvement is a huge part of making the program
so effective, because through his visits to the team Travis can
convey to the children the importance of safe hockey in an
incredibly personal way that they can easily understand.
Another novelty of Play It CoolTM which is helping to make it so
effective is the participation of various NHL players who support
the program. Jarome Iginla of the Calgary Flames, Brad May of
the Anaheim Ducks, and Keith Primeau, who announced his
retirement this year from the Philadelphia Flyers, have all been
instrumental in the development of the program. They have generously donated their time during the filming of the videos used
to teach the “7 skills” and “10 drills”.
Barry Munro, Director of the
THE ABILITY TO
ASRO and Chairman of the CSRO,
DELIVER AND
praises the dedication of those NHL
RECEIVE A CLEAN
players who have committed themCHECK IS ONE OF
selves to the cause. “We felt that it
THE BASIC SKILLS
was a way the players could get
OF HOCKEY, YET
involved to send a message to chilDEVELOPMENT OF
dren and help change the way they
THIS SKILL IS NOT
OFTEN GIVEN THE
played to reduce incidents from
SAME FOCUS AS
occurring.”
OTHER FUNDAMENOverall, Play It CoolTM is a one of
TALS LIKE PASSING
a kind program that draws on the
AND SHOOTING.
strengths of many individuals
throughout all levels of the hockey
community. One of the most exciting features of this initiative is that,
through its skill development it is helping to spread the message
that safer hockey can also be better hockey. All things considered, Play It CoolTM shows an unbelievable amount of promise for
the future!
PHOTOS:
Page 10, Top of Page >> Jarome Iginla showed his unwavering support for SFAC
by taking time out of his busy schedule to assist in the filming of the Play It
CoolTM skills and games.
Page 10, Inset >> Travis Colley-Zorrilla, Ambassador for the Play It CoolTM Program
Page 11 >> Malcolm Sutherland, Shoot For A Cure’s new Director of Hockey
Operations, instructing coaches and players during the pilot phase of the Play It
CoolTM Program.
11
TEAMPLAYERS
SOURCE OF
By >> J A C Q U E L I N E U R A M
SUPPORT
S
Shoot For A Cure (SFAC) views their partnership with Source For Sports as so much more
than a sponsor, Shoot For A Cure feels fortunate to be able to call all of the Source For
Sports members their friends.
The friendship between the two organizations started to blossom with the innovative
NHL Puck and Hat Autograph Program and
has grown today into many different exciting
initiatives that are run to help find a cure for
spinal injuries. The programs that Source For
Sports and Shoot For A Cure have developed
together include:
NHL Puck and Hat Program This is the
program that started it all! A limited number of
hats and pucks autographed by some of NHL’s
greatest players were made available at various Source For Sports locations across Canada.
Fifty-five NHL players participated including
Jarome Iginla, Brad May, Mats Sundin and
Todd Bertuzzi.
2
1
Jersey Raffles Individual Source For Sports
stores are able to offer minor league hockey
teams a chance to raise money for their team
while also helping out Shoot For A Cure. Shoot
For A Cure provides teams with a signed NHL
jersey along with raffle tickets. The hockey
team then sells tickets and raffles the jersey,
donating a portion of the proceeds back to
the charity and keeping the rest for their hockey program.
Shoot For A Cure Shootout This heart
pumping shootout contest was held at the
Hockey Hall of Fame where participants had
the chance to take their best shot while raising funds for the cure.
Mask Auctions Hand painted Itech goalie
masks painted by high profile celebrities, athletes, and musicians are the focus of this
unique fundraising program. The masks, each
a one of a kind work of art, are auctioned online
every November. Previous auction lineups have
included masks by
Wayne Gretzky, Don
3
Cherry, The Rolling
Stones, Tiger Woods,
Michael Jordan, Ken Danby, The Tragically Hip
and numerous others.
Skate Sharpening Day To honor the fact
that November is Shoot For A Cure month,
Source For Sports and over 100 of its member
stores contribute a skate sharpening on the
first Saturday of the month.
National Pond Hockey Championships
This yearly event is held at Deerhurst Resort,
which is a few hours north of Toronto. The
exciting three day event sees more than 150
teams from Canada, the United States and
several other countries competing on 24 rinks
spread across an impressive six acres of shimmering natural ice. While taking the game back
to its roots, hockey enthusiasts participate in a
fun-filled weekend and compete to lay claim
“Truly great friends are hard to find, difficult to leave, and impossible to forget.” It is with
this sentiment that Shoot For A Cure approaches their partnership with Source For Sports,
a tremendous contributor to spinal cord research and awareness.
12
5
8
4
6
to the coveted title of National Pond Hockey
Champions.
Corporate Programs In addition to the
generosity of Source For Sports as a whole,
there are always those friends who have gone
above and beyond in helping Shoot For A Cure
to raise funds for spinal cord research, awareness and injury prevention.
Shoot For A Cure gratefully recognizes the
following stores for the major independent
contributions that they have made in support
of the campaign.
Lacroix Source For Sports In Ottawa
Ottawa’s Lacroix Source For Sports has always
been a strong supporter of the community.
Over the past three decades, Source For Sports
storeowner Andre Lacroix has diligently hosted an annual golf tournament, raising over
one million dollars for a variety of charities
including Shoot For A Cure!
Source For Sports London Through
donations of over $20,000 from the sales of
London Knights T-shirts, London’s Source For
Sports location has generously assisted Shoot
For A Cure. Additionally, this ever-supportive
7
location greatly contributed to the launching
of Shoot For A Cure’s pin program at the 2005
Memorial Cup.
Pins, Bracelets and Paper Pucks A wide
range of individual Source For Sports stores
also raise additional funds through the sales
of Shoot For A Cure pins, bracelets and paper
pucks. Their commitment to going the extra
mile is always appreciated.
In total, through their participation in all of
these programs and events, Source For Sports
has helped to raise over $500,000 in support
of Shoot For A Cure and its goals.
This extraordinary accomplishment would
not have been possible without the leadership
of Source For Sports President, Randy Hopper,
and Source For Sports Marketing Director,
Paul La Vigne; the awareness generated by
the incomparable PR team at OK&D Marketing
Group and, of course, without the unwavering
support of our friends, the member Source For
Sports stores across Canada. Shoot For A Cure
extends a great thank you to each of these
team players for all of their help, support and
commitment to the cause.
PHOTOS:
1 >> Greg Evtushevski, owner of the Source For Sports
store in Kelowna, BC, with SFAC spokesperson Jarome
Iginla and a group of young hockey players.
2 >> Paul Rosen, goalie of Canada’s Olympic gold-winning
men’s sledge hockey team, with Susie Matthias, the
artist who painted the Team Canada-themed goalie
mask which Paul and the rest of the team autographed.
3 >> An Itech goalie mask–hand-painted by Don Cherry–
that raised funds in Source For Sports’ online auction.
4 >> Acres of shimmering natural ice formed 24 rinks
during the National Pond Hockey Championships.
5 >> National Pond Hockey Women’s Champions, the
Concordia Rinkles, proudly display their replicas of the
hand carved maple Championship Cup.
6 >> Ceremonial puck drop at the OHL London Knights
and Source For Sports hockey night, benefiting SFAC.
7 >> Randy Hooper, President of Source For Sports (far left)
and Paul La Vigne, Marketing Director for Source For Sports
present Jarome Iginla, and SFAC representative with a
cheque to help support the programs.
8 >> Individual Source For Sports stores support the
SFAC campaign through the sale of pins, bracelets and
paper pucks.
13
SFAC EVENTS
EVENTS
UPDATE
By >> J A C Q U E L I N E C O O P E R A N D J A C Q U E L I N E U R A M
A FOCUS ON FAMILY AND FUNDRAISING Over the past few years,
Shoot For A Cure (SFAC) has enjoyed a strong and growing partnership
with Johnson & Johnson. The relationship began five years ago when
SFAC was selected to be the benefactor of the company’s annual hockey tournament.
Never in the past had Johnson & Johnson utilized this fun, familyfocused company outing as an opportunity to raise money for a charity.
However, when introduced to the Shoot For A Cure campaign, which
has deep roots in the hockey community, it was obviously an incredibly
natural fit.
So, in May of 2003 over nine hundred employees, from J&J itself and
other companies in the Johnson & Johnson corporate family, participated in the Montreal-based event which raised $30,000. A tremendous
success for a first time event!
One year later, the enthusiasm first demonstrated by the employees
of Johnson & Johnson and its subsidiary companies has not waned in
the slightest. At the 2004 Johnson & Johnson North America Cup
Hockey Tournament, $34,000 was raised through the sale of sporting
14
Shoot For A Cure is an event-driven organization
where proceeds raised go directly to research,
development, awareness and finding a cure.
A major source of fundraising is through events.
We’re proud of how our events have grown
over the past six years, and look forward to
seeing you at the many great events this year!
memorabilia. This figure was generously matched by Janssen-Ortho, a
sister company of J&J.
McNeil Consumer Healthcare, another company in the Johnson &
Johnson family, played host to the 2005 tournament held in Brampton,
ON. In its third year as a fundraiser, the tournament was so rampantly
successful that it raised almost as much as the first two years combined! This brought the tournament’s three year fundraising total to
well over $100,000! Along with the generosity demonstrated in the
form of monetary donations, the enthusiastic involvement of employees and their families certainly added to the feel-good factor of the
weekend event.
This past May, the Johnson & Johnson North America Cup was held
in Montreal, Quebec. This year’s tournament featured a special event
that the saw the 18 individuals who raised the most pledges facing off
against a team of Montreal Canadien Alumni. The Alumni team included NHL greats Gaston Gingras and Rejean Houle, both of whom have
were involved in the first tournament that linked SFAC and J&J, held
back in 2003.
ONEGOAL GALA AT THE HOCKEY HALL OF FAME To kick off the
OneGoal Hockey Show in Toronto, OneGoal and Shoot For A Cure hosted a gala at the Hockey Hall of Fame on January 14, 2007. Members of
the hockey industry had the opportunity to spend time with friends, see
familiar faces and mingle with others in the hockey community while
enjoying great food and drinks.
The evening was hosted by Sportnet’s Daren Millard and Nick
Kypreos and included the following special guests: Leaf great, Ron Ellis;
Canadian Paralympic gold medalist, Paul Rosen and actor Ivon Barrette
aka “Dennis Lemieux” from the movie Slap Shot. The event raised
$20,000 which was split between OneGoal and Shoot For A Cure.
Shoot For A Cure would like to thank the following, without whom the
night would not have been possible: OneGoal members Randy Burns,
Jeff Hieminga, Bill Hattem, Marisa Viviani and to our sponsors 1st star
Source For Sports, 2nd star FURY hockey and MissionItech, 3rd star
Trion Hockey, 29sports, IceHockey World Magazine and MiniLids as
well as Frameworth and the Hockey Hall of Fame for donating the
beautiful facility.
As each year passes the success of the tournament continues to
grow, with this past year’s event raising an unbelievable $75,000! This
has left the entire team here at Shoot For A Cure eagerly anticipating the
upcoming tournament which is set to take place on May 4th and 5th in
Rochester, NY. This will mark the first time that the tournament will be
held south of the border! Like last year, the tournament will feature a
Fantasy Alumni Game with the top fundraisers stepping onto the ice,
this time with former NHL Buffalo Sabres stars. The tournament is being
hosted by Ortho-Clinical Diagnostics, a member company of the
Johnson & Johnson family.
This year’s tournament promises to be yet another exciting time. If
you can’t be there, make sure to browse through post-event stories and
pictures at www.shootforacure.org!
BALL HOCKEY EXCITEMENT AT DOWNSVIEW PARK The annual 3
on 3 Ball Hockey tournament took place on January 13, 2007 at Toronto’s
Downsview Park. The event included over 1,000 people participating
in the ball hockey tournament, listening to the live music, watching the
ice sculpting demonstration and enjoying the delicious food.
The ball hockey team that raised the most in pledges earned the
honour of playing against some NHL alumni greats which included:
Mark Napier, Gary Leeman, Bob Probert, Bill Derlago, Mark Laforest,
Jack Valiquette, Dave Hutchinson, Ric Nattress, Jim Thomson, paralympic gold medallist Paul Rosen, Cheryl Pounder women’s hockey
gold medallist and actor Yvon Barrette from the movie Slap Shot. The
winning team raised $3,800, and played an intense game against their
heroes from childhood.
The day was a great success raising $20,000 for Shoot For A Cure.
A special thank you goes out to Joanne Fulsom and the Downsview
Park team, Mauro Cugini from the Ontario Ball Hockey Association,
Ashley O’Malley, and a special thanks to Keith Primeau for flying in from
Philadelphia to spend the afternoon with the SFAC team.
PHOTOS:
Top >> Chairman, Barry Munro with participants of the 2006 Johnson & Johnson North
American Hockey Cup held in Montreal.
Bottom Left >> NHL goalies Kevin Weekes and Ed Belfour with Barry Munro, Chairman
of the CSRO with representatives from McNeil and Johnson & Johnson at the employee
family skate in 2005.
15
SFAC EVENTS
Total Teamwork
“Championships are won by teams, not by individuals…It is not the name on the back of the jersey,
but the name on the front that matters.” –Raffi Torres By >> C H R I S L O M O N
Leave it to Raffi Torres to come through
in the clutch.
Although he wasn’t sure what to expect of
hosting his first annual charity golf tournament,
Torres, who played a major role in helping the
Edmonton Oilers come within one game of winning the Stanley Cup, did have one goal in mind.
“I’m a big believer in what Shoot For A Cure
(SFAC) stands for, so when it came time to decide
where the money raised from the event was to
go, they were definitely one of my choices,” said
the forward, who netted a career-high 27 goals
in 2005-06, of the popular program supported
by a multitude of NHL players. “What they have
done and continue to do for the game of hockey is very impressive.”
Known for his competitive spirit and steely
determination, Torres, selected fifth overall by
the New York Islanders in the 2000 Entry Draft,
admitted to feeling a little overwhelmed about
headlining the tournament that bore his name.
But, as the Markham, Ontario native discovered over his years in hockey, you can always
get by with a little help from your friends.
“I just wanted everything to go well and for
people to enjoy themselves,” said Torres, of the
16
event held on July 28th at the Angus Glen Golf
Club in Markham.
“The one thing that really impresses me and
lot of the players in the league when it comes to
SFAC is their ability to make people aware of
what they do and what their goals are.”
Having someone like Torres as a supporter
of SFAC isn’t something those associated with
the program take for granted.
“Heart, character, passion, giving – hockey
players in most part are grounded,” said Kerry
Goulet, of SFAC. “They have learnt from a young
age that teamwork is far more important than
individual efforts.”
“Championships are won by teams, not by
individuals and SFAC knows that the research
to take out this injury needs teamwork. It is not
the name on the back of the jersey but the
name on the front that matters.” Raffi certainly
exemplifies that.”
PHOTOS:
Top >> Anthony Stewart, Center for the Florida Panthers,
with Travis Colley-Zorrilla, Play It CoolTM Ambassador.
Middle >> Host of the day, Raffi Torres, with Edmonton
teammates Ethan Moreau and Jarret Stoll.
Bottom >> Former Edmonton Oiler, Rem Murray (far right)
on the tee block with his foursome.
SFAC EVENTS
Anchors to
ACES...
…flossing to fairways, tackle to
tee times! Shoot For A Cure,
Legends of the Game and
G&A Corporate Events teamed
up to raise money for both
spinal cord research and the
Hockey Hall of Fame.
LEGENDS OF THE GAME FISHING CLASSIC
From May to July, on the northern coast of
British Columbia, thousands of salmon stop to
feed in the calm waters of the Whale Channel
while journeying North to the Kitimat River. This
makes the West Coast Resorts’ floating lodge
an ideal choice for a fishing trip. The floating
lodge begins the season in the Whale Channel,
migrating South as the summer progresses
and salmon runs change. This provides optimum fishing conditions for guests.
This wonderful experience was made even
more special for a few individuals who came
to the lodge in support of Shoot For A Cure
(SFAC) and the Hockey Hall of Fame. Over the
course of five days, these lucky individuals
took to the waters with hockey legends Bobby
Baun, Johnny Bower, Rick Vaive (all former
Maple Leafs), Denis Potvin (NY Islanders), John
Bucyk (Boston Bruins) and Danny Gare
(Buffalo Sabres). This past summer marked
the 5th annual Legends of the Game Fishing
Classic and was successful in raising $40,000
for the two charities, bringing the five year
total to an astounding $200,000.
As the fishing season approaches we look
forward to this year’s event which will take
place July 7th to the 12th, again at the floating
Whale Channel Lodge. Hockey fans are encouraged to sign up early, as space is limited. For
information securing a spot please contact
Geoff Godden at (905) 256-6056 or via email
at [email protected].
LEGENDS OF THE GAME GOLF CLASSIC This
summer the annual Legends Golf Classic
joined forces with the Fury Golf Classic to form
one all-star event. Combining the events united some of the game’s current greats with
legends of the past, together the two generations of players teamed up to support two
very worthy causes!
The tournament, which was held on July
18th, 2006 at The Club at Bondhead, was
hosted by Philadelphia Flyers Captain Keith
Primeau. Other celebrity guests included current
NHLers: Brad Boyes (St. Louis Blues), Wayne
Primeau (Calgary Flames), Jason Ward (Tampa
Bay Lightening), and Carolina Hurricanes 2006
Stanley Cup Champ Justin Williams. Hockey
Legends that showed up to support the two
charities included Bobby Baun, Johnny Bower,
Johnny Bucyk, Ron Ellis and Tony McKegney.
Also in attendance was Pittsburg Steelers wide
receiver and Superbowl Champ, Sean Morey.
Golfers were pleasantly surprised when they
arrived at the 10th tee where they were presented with a free pair of Crocs shoes custom
designed in SFAC colours! Crocs, who were
well represented with a foursome in attendance, donated over 200 pairs of shoes for the
tournament. The shoes were so comfortable
that a few golfers retired their golf shoes for
the day and finished their round sporting their
newly donned Crocs!
Overall, the day itself was perfect in every
way imaginable, from the balmy weather and
sunny skies to the success of the funds raised
for the two charities – which was upwards of
$35,000. However, this would not have been
possible without the support of all parties
involved. While there were countless individuals who were instrumental in the execution of
this very successful event, the Canadian Spinal
Research Organization would like to extend a
special thanks to Geoff and Ann Godden at
G&A Corporate Events and Consulting for their
tireless hard work and continuing support of
our organization. As well, we would like to
thank our host, Keith Primeau and his wife
Lisa who not only showed their support the
day of the event, but also assisted in preparations leading up to the event by procuring
numerous prizes for both the live and silent
auctions.
To all of those who attended the event, Shoot
For A Cure is incredibly grateful for your support. We hope that you enjoyed yourself and
we look forward to seeing you on the course
again this summer!
17
6
EVENTEEN YEARS AFTER THE lRST /LDTIMERS (OCKEY #HALLENGE WE
STILL GET GOOSEBUMPS WHEN THE PUCK IS DROPPED !ND NO IT HAS
NOTHING TO DO WITH THE TEMPERATURE OF THE ICE
4HE PASSION SKILL AND FRIENDLY SPIRIT THE PLAYERS BRING TO THESE
GAMES IS SIMPLY THRILLING 4HESE ARE SOME OF THE BEST PROFESSIONAL
HOCKEY PLAYERS TO HAVE EVER LACED UP THEIR SKATES AND THOUGH
THEY MAY BE RETIRED FROM THE .(, THEY ARE STILL A WHOLE LOT
OF FUN TO WATCH
9ET WHAT IS TRULY INSPIRING ABOUT THESE PLAYERS IS THEIR
COMMITMENT TO HELPING US SUPPORT A WIDE RANGE OF DESERVING LOCAL
CHARITIES IN THE TOWNS AND CITIES WE VISIT AS PART OF OUR ANNUAL TOUR
4HE /LDTIMERS (OCKEY #HALLENGE FEATURING THE ,EGENDARY (OCKEY
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SFAC EVENTS
Funds &Games
This year’s Legends Tour kicked off
in Toronto, coinciding with the Hockey
Hall of Fame (HHOF) induction ceremonies
honoring one of the NHL’s greatest goalies,
Patrick Roy and former Maple Leaf, Dick Duff,
who was instrumental to the Leafs, in winning
the Stanley Cup twice back to back in 1962
and 1963. Recognized alongside these two
outstanding individuals, were Herb Brooks
and Harley Hotchkiss, both of whom made a
significant impact on the game of hockey;
they were inducted into the Hall under the
Builder category.
Along with Toronto, the tour included stops
in Ottawa, Calgary, Edmonton and Vancouver.
The week long tour allowed former teammates
and opponents to reunite on the ice. It also
gave the fans a chance to watch some of their
old favorites battle it out once again!
In each city the players faced off in a challenge that saw the Canadian players “take on
the world.” Michel Goulet, Dale Hawerchuck,
Lanny McDonald, Larry Robinson, Steve Shutt
and feared goalie, Billy Smith were among the
Hockey Hall of Famers representing Canada.
Two-time Olympic gold medalist Hayley
Wickenheiser and Geraldine Heaney joined
the men on the ice for Team Canada, while
former teammate Cassie Campbell took on a
coaching role. Both on and off ice star Angela
Ruggerio, an Olympic Gold Medalist and a
contestant on the current hit NBC show, The
Apprentice, represented the women for Team
World and taught the guys a few things along
the way.
On the opposing team was former Leaf, Borje
Salming, who had his number recognized at
the ACC this year. His tenacity was a driving
The 2006 Hockey Hall of Fame
Legends Classic Tour was yet
another rousing success for
Shoot For A Cure.
force that helped pave the way for European
players behind him. Joining Salming were two
of the three Stastny brothers (Peter and Anton).
The Stastnys represent a family dynasty within
the NHL. Peter, Anton and their brother Marian
played in the NHL during the 1980s, and were
one of the few brother trios to ever play
together on the same team! The Stastny legacy has been carried on by Peter’s sons Yan and
Paul, both of whom currently play in the NHL.
Ultimately, the tour was a fun-filled week for
players and fans alike! Shoot For A Cure and
the Canadian Spinal Research Organization
would like to thank the fans for their enthusiastic support, the players for their participation and express their gratitude to the Hockey
Hall of Fame and Xentel who have helped us
raise over $60,000 for spinal cure research
through this event alone.
19
SFAC MOTO-SPORT
It’s said that serious injury amplifies an individual’s personality traits. In the case of Jonathan Dehaas,
an athlete with singular strength of spirit, this certainly proved true. By >> J A C Q U E L I N E C O O P E R
PHOTOS:
Above >> Jonathan
water-skiing – a
sport he adopted
following his
injury
Above inset >>
Jonathan with his
custom-built
Monte Carlo car
Right >> A muddy
Jonathan shows
his zest for adventure
Below >> Enjoying
the sights in the
mountains
Jonathan Dehaas is the
quintessential adrenaline junkie. Much of his life has
been spent in the pursuit of
speed. At the age of 14, Jonathan
began racing motorcross bikes
on the CMRC circuit. A few years
later he began dabbling in stock
car racing, but after limited success, he chose to enter a training program to race open
wheel Formula cars. Here
Jonathan excelled. His fearless
approach allowed him to push
the limits and come out victo-
rious winning the 1996 F2000
CASC Championship.
Just as his career was really
taking off, tragedy struck. One
autumn day, Jonathan hopped
on his motorcycle with the
intention of selling it; a fluke
accident caused him to be
tossed from his bike. The
injuries he sustained were so
extensive they left Jonathan
fighting for his life. Jonathan’s
life hung in the balance for
two days before his condition
finally stabilized. Though he
was out of the woods, he still
had a long road to recovery
before him. Jonathan’s spinal
cord had been severely dam-
“I REMEMBER
LYING IN THE
HOSPITAL…
THINKING ABOUT
RACING AGAIN
AND WHAT OTHER
SPORTS I COULD
GET INTO.”
20
aged in the accident, causing
him to be paralyzed from the
waist down.
While there is no uniform
model of coping after a spinal
injury, some people claim that
in many cases, a spinal injury
amplifies the existing personality of the individual. This certainly seemed to hold true in
Jonathan’s case. Despite his
injury, Jonathan’s thrill seeking,
dynamic nature showed no
signs of waning. Thinking back
to the period immediately following his accident Jonathan
says, “I remember lying in the
hospital, before I could even sit
up on my own, thinking about
my options…how I could manage racing again, what other
sports I could get into.”
Just eight months after his
accident Jonathan was back in
the driver’s seat. Rather than
returning to the Formula 2000
circuit Jonathan decided to
take on a new challenge, GT-1
endurance racing. Not only was
it physically more grueling, but
technically speaking, Jonathan
had to make adjustments to
driving a sedan as opposed to
the single seater he was used
to racing prior to his injury.
Jonathan’s hard work began
to pay off as he started making
competitive lap times in his
modified Monte Carlo. Yet he
grew dissatisfied with racing as
he could not quite attain the level of proficiency he had behind
the wheel before his accident. “It’s hard to continue doing something you are passionate about after you have recognized that
you are past your peak. Knowing that I was unable to match my
prior ability and achievements, I began to look for a new sport
with which I could challenge myself.”
So with that, Jonathan turned his attention to an activity completely foreign to him, water-skiing. He quickly mastered the sport
and went on to place in the top 15 at the World Championships
for water skiers with a disability. Although he does not compete
anymore Jonathan still enjoys to water ski recreationally. This, is in
addition to a slew of other activities which he continues to enjoy
including: sledge hockey, tennis, and riding his ATV.
While competitive racing may be behind him, it certainly still
remains one of his passions. One way that Jonathan stays connected with the industry is through his ties to Uni-Select, an automotive parts distributor. In fact, it was Jonathan who was initially
responsible for uniting Uni-Select with the CSRO. Over the years,
Jonathan has remained involved with Uni-Select’s annual golf
tournament held in support of the CSRO and the spinal research
projects it endorses.
At this time, we would like to take the opportunity not only to
reflect back and thank Jonathan for his contribution to what has
flourished into an ongoing and successful relationship between
Uni-Select and the CSRO, but also to recognize Jonathan’s strength
of spirit and showcase it to others. He is a dynamic, energized
individual, full of a love for life that serves as an inspiration to all
those around him.
A DAY AT THE RACES!
This past May the SFAC team
attended the Indy
500 where they met with
representatives of Sam
Schmidt Motorsports and
discussed the possibility of
forging a future partnership.
Sam Schmidt raced cars in
the Indy Racing League
(IRL) until he suffered a
spinal cord injury in January
of 2000 when he lost control of his car and crashed
during a practice session.
Barry Munro, Director of the
ASRO and Chairman of the
CSRO, was pictured during
this trip posing next to the
Borg-Warner Trophy and
crossing the famous “yard
of bricks” start/finish line.
Learn more about Shoot For A Cure and stay on top
of all our exciting upcoming campaign events when
you visit www.shootforacure.org.
In addition to Shoot For A Cure information and
news, we also invite you to visit our on-line shop.
Every item purchased at www.shootforacure.org
helps support our campaign goals of raising funds
for spinal cord injury awareness, prevention,
research and cure. Your generous support helps us
continue to grow.
www.shootforacure.org
21
SFAC CURLING
Greetings, from Shoot For A Cure Curling! This promises to be an
exciting year for Shoot For A Cure Curling (SFACC). One of the primary
goals of the campaign, to organize SFACC bonspiels across the country,
is now coming to fruition. On the heels of the perennially successful
Spinal Tap Bonspiel (which has raised $170,000 over the past 15
years), the 3rd Annual Durham College Sports Admin. Bonspiel and the
1st Annual Vernon Shoot For A Cure (SFAC) Charity Bonspiel will run
under the SFACC umbrella in an effort to raise funds and awareness for
the campaign. To participate in these events, or to learn more about the
campaign, visit shootforacure.org.
22
What is Shoot For A Cure Curling? Shoot For A Cure Curling is a
campaign of the Canadian and American Spinal Research Organizations
that solicits the support of the curling community to raise awareness of
spinal cord injury (SCI) prevention, research and cure. Additionally, funds
raised by SFACC are used to endorse the sport of wheelchair curling. By
promoting wheelchair curling within the SCI community, SFACC seeks to
improve the overall quality of life for people with SCI by encouraging
individuals to adopt a healthier, more active lifestyle.
Why Participate in Wheelchair Curling? Established only 4 years
ago, this relatively new sport is already recognized by the International
Paralympic Committee as a full medal sport at the Paralympic Winter
Games. It is a great choice of exercise for anyone who is non-ambulant,
including individuals with SCI. Wheelchair curling is an excellent form of
physical/mental training and social booster for people with SCI. It offers
a beneficial physical workout leading to a healthier lifestyle and is also
a great opportunity to get out and socialize with others. As people are
generally less active during the winter months, this winter sport is an
amazing “excuse” to train and have fun. For more about wheelchair
curling, including where to play, visit shootforacure.org.
Spinal Tap/CAN-AM Challenge Join Forces SFACC is proud to
announce an alignment between the Spinal Tap Charity Bonspiel, and the
Extender CAN-AM Wheelchair Curling Challenge. The CAN-AM Challenge
pits the 2006 Paralympic Gold Medalists, Team Canada, versus Team USA
in a best-of-3 challenge that will help prepare the teams for the upcoming World Wheelchair Curling Championships. The event will take place
during the Spinal Tap Bonspiel, February 3rd, 2007, at Thornhill Country
Club. Extender, makers of the Extender Curling Stick, have come aboard
as sponsors for the event. Campaign chairman, Ryan Durham, is pleased
that a bonspiel under the SFACC umbrella, such as the Spinal Tap, can
showcase the sport of wheelchair curling at the elite level.
Vernon
Curling
Club
Does
Their
Part!
SFAC gained a new supporter when the cashspiel at Vernon Curling
Club in British Columbia hosted a silent auction as the lead up to a first
ever SFAC bonspiel to be held later this season. The silent auction was
incredibly successful, raising $3,000 for the campaign. The items up for
auction included autographed hockey memorabilia and pieces of artwork, in addition to the medley of items donated by local businesses in
Vernon. Our thanks to all those who contributed and helped run the
event!
FUNDRAISING
THROUGH UNYIELDING ENTHUSIASM, THE CSRO HAS RAISED MILLIONS OF
DOLLARS FOR SPINAL CORD INJURY CURE RESEARCH.
Goals &
Research
When the CSRO was established
in
1984, it was operating against the tide
of conventional thinking in the scientific community. At the time, cure oriented spinal
research was discouraged as there was a
false belief that by searching for a cure, scientists would be fostering an unrealistic dream
which kept people with a SCI from moving on
with their lives. However, the individuals who
founded the CSRO were not deterred. In fact
they were spurred on, giving credence to the
view that, “Opposition inflames the enthusiast,
never converts him!”
Thanks to the determination of these pioneers, who refused to abandon hope, today
the field of SCI cure research is a vibrant one
which is continually drawing closer to the
much anticipated finish line. The strides that
have been made in the past couple decades
are absolutely astounding. The progress that
has been achieved is so great that the question regarding the discovery of a cure is no
longer a matter of IF but instead WHEN, making this an unbelievably exciting time for all of
us involved. The following highlights a few of
the most exciting cure research initiatives
funded by the CSRO. The research teams involved with each project are incredibly bright and
passionate people who are working hard everyday to bring us closer to finding a treatment or
combination of therapies that will eradicate spinal cord injuries for good.
McMaster University in Hamilton, Canada One of the research initiatives that the CSRO is
currently funding is a project at McMaster University in Hamilton, ON, called Enteric
Neurotransplantation. The project involves harvesting enteric (intestinal) cells from a person with
a SCI and transplanting them to the damaged area of the spinal cord. This process attempts to
reverse the neurological damage caused during a SCI by providing a fresh supply of nerve cells
from the person’s own body. One of the benefits to this treatment is that the risk of host rejection is substantially lessened due to the fact that the cells are obtained from the individual’s own
body as opposed to a donor. The trials being conducted by the research team at McMaster are
particularly promising for a number of reasons. First the rats given this treatment have exhibited
successful regrowth of nerve cells in the injured region of the spinal cord. More importantly however, the cells are not only growing across the injury but also reforming the proper connections.
This is significant because it is the formation of correct reconnections which restore function. The
CSRO is focused on carrying research from “bench to bedside”, meaning it commits itself to seeing projects through, ensuring that the research we support eventually can be applied to help
people. So, we are excited about the progress being made at McMaster and look forward to
keeping you informed about future developments as we work to become closer to conducting
human trials.
University of California in San Diego, USA The department of neurosciences at the
University of California is a hotbed for cutting edge developments in spinal cure research. By collaborating with other leading SCI centres, the researchers at U of C have been able to press forward
in many areas making strides in the level of animal subjects used. Currently, there are investigations
being conducted at the University using primates. This generates great excitement as it brings the
research one step closer to human trials, and thus that much closer to developing a successful form
of treatment.
While the lab brings together a number of incredibly gifted researchers there is an especially
intense enthusiasm in the work of Dr. Lu. His determination stems from a personal interest in discovering a cure. For, ten years ago Dr. Lu was in a car accident that left him paralyzed and confined to a wheelchair. Presently, his focus is on the use of gene therapy and the application of neural growth factors to facilitate the regeneration of nerve cells at the site of the injury in the spinal
cord. As we learn more about the role of nerve growth factors in the body, this area shows itself
to have an enormous amount of potential in the future treatment of spinal cord injuries.
““AT FIRST SOMETHING SEEMS
IMPOSSIBLE;
THEN IT BECOMES
IMPROBABLE;
BUT…
WITH ENOUGH
CONVICTION AND
SUPPORT, IT FINALLY
BECOMES
INEVITABLE.”
CHRISTOPHER REEVE
On Finding A Cure for Spinal Cord Injury
23
Serious injury
requires care
... delivered by specially trained caregivers
At Bayshore Home Health, we understand the needs of people with serious injuries and are
committed to providing the expert care they deserve.
Our nurses and caregivers are specially trained to deliver the highest level of serious injury
care, and draw knowledge from internal clinical consultants in areas
such as wound, fracture, amputation, spinal cord and acquired
brain injury care.
We also offer a range of attendant care services, including
personal hygiene, dressing, meal preparation, feeding, light
housekeeping and companionship. Our services are available
through more than 30 offices across Canada, supported by
a National Care Team that provides a convenient, central
point of contact.
Experience the Bayshore Difference: expert and reliable
serious injury care delivered by dedicated specialists.
To learn more, please call 1.866.265.1920.
www.bayshore.ca
Better care for a better life
Champs For A Cure
For a decade or more, these individuals have generously lent
their support to the CSRO.
[above, left to right] Maxine Gaddye, Richard Fraser, Jean Fraser and CSRO Representative Laura Smith.
A DYNAMO TEAM!
The CSRO honors Richard and Jean Fraser, a remarkable
couple, with the Ralph Spadafore Memorial Volunteer
Recognition Award. By I V A N A D JO R D J E V I C
Every year the Canadian Spinal Research Organization (CSRO)
presents the Ralph Spadafore Memorial Volunteer Recognition Award
to an exceptional CSRO volunteer who has demonstrated an outstanding dedication and commitment to helping us find a cure for
paralysis. In 2006, we honor two recipients. They are our long-time
friends Richard and Jean Fraser from Stittsville, ON.
This stellar couple has been organizing Victorian luncheons to raise
funds in support of SCI research for years. The event is always a day
of fun and excitement for Richard and Jean’s guests. Dressed up in
Victorian costumes, they travel back in time while enjoying lunch
at the Victorian transformed Fraser’s home.
What is remarkable is the growth of this event. What began as a
small, intimate fundraiser has now developed into an incredibly
popular, flourishing event. “The success of our event has been tremendous, and we are very grateful for the large number of volunteers who
help us”, said Richard Fraser. “We never dreamed a few years ago that
we would be serving lunch to 300 people over a five day period in our
home to raise funds and awareness for spinal cord injuries.”
Over the years, the Frasers have raised thousands of dollars for the
CSRO and SCI research. A contributing factor to their success is the
enormous amount of fun people have at the event. Guests always
look forward to the next luncheon with great anticipation. For, as
they have fun frolicking in their ruffles, they know they’re assisting a
worthy cause – helping people with spinal cord injuries.
Thank you Richard and Jean Fraser! Without your help and the
support of other dedicated volunteers like you, the CSRO would be
unable to reach its goals.
Mike Dorman truly embodies what it
means to be committed to people with
spinal cord injuries through his ongoing industy involvement over the past
20 years. After years of working at
Therapy Supplies, Mike recently experienced an exciting career move which
has kept him within the industry, now
working as the Vice President of Rehab
Sales at Shoppers HomeHealthCare.
Over the years, Mike has been one of the CSRO’s most dedicated allies, bringing together industry suppliers through an annual
golf tournament and other fundraising programs that aid CSRO
sponsored spinal cure research. Through his efforts he has helped
raise over $500,000. Additionally, for the past several years Mike
has been an active board member of the CSRO. Mike continues
to Champion our cause in his new position with Shoppers
HomeHealthCare and we are grateful to count him as both a
partner and friend.
Fern Fraser & Nancy Young began
their journey with the CSRO 18 years ago
when Sandra Burton was injured in a
pool accident that left her a
quadraplegic. After the accident, the
community rallied to support Sandra and
her family. In doing so, Nancy and Fern
quickly established themselves as two
key figures in the fundraising efforts.
Fern who is Sandra’s aunt and Nancy,
a family friend, organized baseball games, pancake dinners and
an annual golf tournament which they ran successfully for 13
years. This raised money to alleviate injury-related costs for
Sandra’s mother, who was a single parent of five. Almost two
decades later this dynamic duo is still going strong!
Inspired by the Ottawa Stitsville Tea, Fern and Nancy now hold
their own Victorian tea in Bradford. Each year they improve upon
the last, and their aspirations for the event continue to grow! The
dedication exhibited by these two wonderful women deserves
special recognition. They are true Champions For A Cure!
Ryan Durham suffered a spinal injury
in 1990 as a result of a diving accident.
The injury left Ryan a C4-5 quadriplegic. Soon after sustaining his injury,
Ryan became involved with the CSRO.
Ryan’s contribution to the CSRO has
been unwavering. He has devoted
countless hours to orchestrating events,
raising hundreds of thousands of dollars for spinal research. Two of Ryan’s
main initiatives include the Annual
Spinal Tap Mixed Bonspiel and the CSRO’s participation in the
Rogers Rotary Auction. In addition to these events, Ryan is devoted
to the CSRO’s Shoot For A Cure campaign. While his primary
focus is on developing the Curling branch, Ryan happily assists in
any way he can. Over the past 15 years Ryan’s commitment to
the cause has been beyond compare, and clearly distinguishes
him as one of our Champions!
Spring 2007
•
CSRO MAGAZINE
7
CSRO RESOURCES
After & Beyond
Manual Make-Over
The Canadian Spinal Research Organization (CSRO) is very excited to
announce the release of the newly updated 3rd edition of the
After and Beyond® Spinal Cord Injury Resource Manual. The project
of rewriting the Manual is finally coming to an end, and we, at the
CSRO, are proud of the work we have accomplished.
The After and Beyond ® Resource Manual was first published in
2002 as a comprehensive resource guide covering issues relevant
to the health and daily living of an individual with a spinal
cord injury (SCI).
not discussed in great enough detail. As a result, we have added
further medically relevant information, more consumers’
quotes and at the end of each chapter, a “More Questions…”
section to address miscellaneous questions one might have.
The Importance of Consumer Input From the beginning, the
priority has always been to create a useful informational tool for
the consumer. For this reason, the After and Beyond ® Resource
Manual has always been completely consumer oriented. To keep
consumer perspective central within the project, included consumers in every step of the creation process. In the initial stages
of the project, consumers identified topics of the greatest concern to them. We then involved them in preliminary research,
eliciting invaluable first hand information about living with a
SCI. We continued to engage several consumers throughout the
writing process and solicited the help of consumers from across
the country to assist in evaluating the Manual. Appropriately,
being made primarily for consumers, the Manual has always
been offered free of charge to anyone with a spinal cord injury.
Make the Manual easier to read and understand While originally
created for the lay consumer, we paid special attention to the
language used when rewriting the Manual. Although medically
based, the content is rewritten using simplified terminology
with emphasis on clear, concise wording. This ensures that it is
easy to understand from the consumer’s perspective.
Revising the Manual As with any medical resource manual, the
After and Beyond ® Manual required an update to stay current
with advances in science and technology. Remaining loyal to
the ideology of serving consumers, we turned to them once
again to review and evaluate the Manual. As a result, the third
edition of the After and Beyond ® Resource Manual is the most
comprehensive version yet compiled. While rewriting the Manual,
our editorial team was guided by the following objectives:
Improve the Manual content The Manual has been expanded in
two ways. First, we broadened the scope by adding new topics
which were not discussed in the previous publication. Second,
we improved upon content by expanding on areas that were
8
CSRO MAGAZINE
•
Spring 2007
Make the information easily accessible Keeping in mind the volume of information provided in the Manual, we incorporated a
mini table of contents for each section to help individuals
locate the information the are looking for quicker.
Give the Manual a “new look” Along with changes to content,
we decided it was time to give the Manual a “face lift”. The new
Manual layout has been reworked to include more photos, charts,
and other images that make it a more appealing read.
Our Partners We’re pleased to announce that we have formed
a partnership with the Ontario Neurotrauma Foundation (ONF)
on this project. The ONF sponsored and coordinated rewriting
the “Research” chapter. This new chapter offers information that
differentiates between cure and care research, explaining the
current research streams found within each field.
The most recent draft of the After and Beyond ® Spinal Cord Injury
Resource Manual was presented at the second National Spinal
Cord Injury Conference last October and was received with
enthusiasm. Insightful reviews and critiques from consumers
and health care providers at the conference will be incorporated
in the final product which is due for release in spring 2007.
CSRO EVENTS
Edition Three Mobilized
T
The second National Spinal Cord Injury
Conference, held on October 26-28th at
the Marriott Eaton Centre hotel in
Toronto, was a great success for the
(CSRO). The Conference was planned
and organized by the Toronto Rehab
Institute, with Anita Kaiser, the Chair of
the CSRO Research Committee, being
one of the main organizers.
The CSRO was honored to support and
participate in the conference as a platinum
sponsor along with our partners – the
Ontario Neurotrauma Foundation (ONF).
Our main objectives in attending the
conference were to introduce the CSRO
to conference participants who might
not be familiar with our organization, as
well as to promote the upcoming third
edition of the After and Beyond ® Spinal
Cord Injury Resource Manual.
Overall, attending the conference proved
exceptionally beneficial for the CSRO,
as we achieved more than originally
anticipated. With the money provided
by the CSRO and ONF the conference
was able to sponsor the attendance of
twelve consumer leaders from across the
country. The CSRO used this occasion
to form a focus group in order to discuss
the Manual. We received great feedback
and excellent insights from all twelve
participants. This exchange was extremely advantageous as the new version of
the Manual strives to be more applicable
to individuals nationwide.
Commonly shared conclusions among
focus group members included the following comments: the After and Beyond ®
Spinal Cord Injury Resource Manual
was excellent, comprehensive, easy to
understand and successful in addressing
a great variety of issues of possible interest to the consumer.
One of the main goals of the conference
was knowledge mobilization. This objective was intrinsic to inspiring the role of
the consumer leader at the conference.
As part of their duties in attending the
conference, the consumers agreed to fill
the role of a knowledge broker, taking
the knowledge they gained at the conference back into their communitites to
share with other consumers. Many of
them, not being from the Toronto area,
were not familiar with the After and
Beyond ® Manual prior to attending the
conference. In this way, the conference
provided a platform for the CSRO to
promote the new edition of the Manual
Success at the second National
Spinal Cord Injury Conference
where the After and Beyond®
Spinal Cord Injury Resource
Manual generated interest and
broadened its reach!
and broaden its reach to consumers
across the nation.
The opportunity to disperse knowledge
and increase awareness of the Manual
was not restricted to the consumers, but
also applied to the other 300 participants
attending the conference (mostly health
care providers such as doctors, nurses and
OTs). Those who stopped by the CSRO
booth expressed great interest in what
our organization does, and especially in
the After and Beyond ® Spinal Cord Injury
Resource Manual. Many of them articulated the need for such literature in their
line of work, and expressed a desire to
obtain a copy of the third edition upon
its completion.
Ultimately, the benefits reaped from the
CSRO’s involvement in the conference
are incalcuable. New friends were made,
fresh support garnered and opportunities
for growth and exposure seized. All of
this was in addition to the fulfillment of
our main goal – the comprehensive evaluation of the latest edition of After and
Beyond ® Spinal Cord Injury Resource
Manual, by both consumers and professionals in relevant fields. Altogether, it
is safe to claim this was another CSRO
victory!
Spring 2007
•
CSRO MAGAZINE
9
CSRO EVENTS
Summer & Autumn
EVENTS
In 2006, the Canadian Spinal Research Organization was immensely
grateful to all of its supporters who contributed to yet another truly
successful year of fundraising!
Through the generous help of our friends, the Canadian Spinal Research
Organization (CSRO) organized a number of events over the course of the
summer and fall. These included golf tournaments, Victorian luncheons,
and TV auctions. There is no doubt that these events would not have been
as triumphant without the loyal commitment of our volunteers, participants
and corporate sponsors who came out to support the CSRO. We extend the
warmest of thanks to all of you for helping us raise thousands of dollars for
spinal cord injury (SCI) research!
The Club at Bond Head
Aylesworth Golf Tournament & Therapy Supplies/CSRO Golf Tournament
Uni-Select Golf Tournament
July 6th, 2006 was an especially prosperous day for the CSRO. We hosted two golf
tournaments North of Toronto at the particularly picturesque Club at Bond Head.
All proceeds of the day went towards SCI research.
Our friends at Uni-Select, Canada’s leading network of independently owned auto
parts dealers, once again selected the CSRO
as the beneficiary of their annual charity
golf tournament.
The Aylesworth Golf Tournament was held in the morning. Retiring after nine
holes, the group listened to a presentation on the new “Research” section of the
upcoming revised 3rd edition of the After and Beyond ® Spinal Cord Injury
Resource Manual, while enjoying a delicious lunch. Following lunch, the host of
the day, Joe Falconeri of Aylesworth law firm livened up what started as a silent
auction by jumping into the role as auctioneer! Thanks to his animated efforts we
raised over $3,800 for SCI research!
The annual Golf Tournament held in the afternoon with our long time supporter
Therapy Supplies, was also a great success. The participants enjoyed 18 holes of
golf, followed by dinner and auctions both live and silent. In total over $50,000
was raised! A special thank you to Mike Dorman!
10
Anita Kaiser, Chair of the CSRO Research Committee accepting a
cheque for nearly $30,000 at the Uni-Select’s annual charity golf
tournament.
CSRO MAGAZINE
•
Spring 2007
This year, $28,000 was raised with all the
proceeds going to Shoot For A Cure (SFAC)
Moto-Sport. Appropriately, this branch of
the SFAC campaign is directed at raising
awareness regarding the importance of safe
driving in order to reduce the incidence of
spinal cord injuries due to motor vehicle
crashes, as well as raising funds for spinal
cord injury research.
Time Travel Raises Funds for Spinal Research Once Again!
This year marked the third year that Richard and Jean Fraser brought back the
Victorian era atmosphere to their home in Goulbourn in order to raise funds for
the CSRO.
The Victorian lunches were held over five days, from August 16 to 20, 2006 hosting
over 300 guests. It was a unique experience for all of the attendees as they traveled
back in time dressed in Victorian costumes to lunch at the Fraser’s Victorian
transformed home. Although wearing costumes was not compulsory, the ladies
were encouraged with the prizes for best costume and the most attractive hat.
All guests attended the event by reservation, with the minimum donation of $25.
In addition, the hosts had a raffle with over 100 prizes donated by local businesses
and individuals. These five days were an extraordinary happening in Goulbourn,
offering guests a chance to engage themselves in a good cause while having some
very traditional fun! Thank you Richard and Jean Fraser!
[Above left] A few of the beau-tea-ful attendees at Richard and Jean Fraser’s Victorian tea. [Abover right] Ladies from the Red
Hat Society – whose sole purpose is to have fun! – fulfill their high-spirited mandate while supporting spinal research.
Fern & Nancy’s Bradford Tea
Fern Fraser and Nancy Young created quite the sensation yet again, putting on
their fabulous Victorian Tea, which they have hosted for the past few years in Nancy’s
home. The event was extraordinary; 55 women attended and almost $5,000 was
raised for spinal research. Despite this success, it is likely that this will be the last
time Nancy will open her home to host the Victorian Tea. Do not fear though, for
the Tea will still take place! “We have decided it is time to grow the event,” says
Nancy, “Which is why we have decided to host the Tea in the local Presbyterian
Church.” Nancy and Fern claim they are expecting in the neighbourhood of 125140 women to attend this year’s event, which will be held in the first week of
November. In addition to allowances for greater size, another bonus of the new
location is that it is wheelchair accessible! Good luck to Fern and Nancy!
28th Annual Rogers Cable Charity TV Rotary Auction 2006
The 2006 Rotary Auction was another successful fundraising event for the CSRO.
The auction took place on December 1st, 2nd, and 3rd on Rogers Local Channel
63 in York Region. The auction has been an annual event supporting charities in
the York Region for almost three decades now. The CSRO has taken part in this
event for a number of years and has enjoyed tremendous success, raising over
$150,000 for spinal cure research. This year was no exception; the CSRO was
responsible for donating over 300 items and bringing in $15,000 – a total of over
one third of the total proceeds raised!
Chris Beehler at
this year’s Open.
Chris Beehler Open Turns Ten!
August 16, 2006, marked an important
milestone in the successful history of the
Chris Beehler Open. The tournament,
which was again held at the Colonnade
Golf and Country Club in Joyceville, celebrated its 10th anniversary!
Over the course of the past decade, the
Chris Beehler Open has raised over a
whopping $200,000 for the CSRO and
SCI research. We extend great thanks to
all those involved in planning the 2006
event as well as those who have worked
so hard in seeing the tournament through
to ten triumphant years.
CSRO Hamilton Golf Tournament
July 27, 2006 was a wonderful day of golf
at the Beverly Golf & Country Club in
Copetown. We were pleased to have our
friends join us for a fun day of fundraising!
Notable tournament attendees included
Natasha Mrkovich, a local artist who
kindly donated one of her prints for auction and Dr. Rathbone from McMaster
University in Hamilton. Dr. Rathbone’s
laboratory, is conducting trials experimenting with Enteric Neurotransplantation
and is one of the SCI research projects
supported by the CSRO. Consequently,
Dr. Rathbone was particularly happy with
the success of the day raising over $18,000
in support of finding a cure.
Spring 2007
•
CSRO MAGAZINE
11

Clinical Trials Yield Exciting Potential for Future Applications Clinical

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