2012-2013 Biennial Report - Parkinson`s Disease Foundation

Transcription

PARKINSON'S DISEASE FOUNDATION
Biennial Report 2012-2013
Table of Contents
2
Letter from Leadership
4
People Advancing Science
10
Science Informing People
14
Our Donors
32
Our Researchers
38
Financial Reports
40
Our People
The essence of PDF’s work over this period may be encapsulated into the
following theme: People Advancing Science/ Science Informing
People. In these phrases rests the heart of PDF’s strategy: linking our
dreams for tomorrow with the necessary tasks of today.
Dear Friend of the Parkinson’s Disease Foundation:
With pleasure and pride, we send you Impact, the biennial report for the
Parkinson’s Disease Foundation (PDF) for fiscal years 2012 and 2013.
The essence of PDF’s work over this period may be encapsulated into the following theme: People Advancing Science/ Science Informing People. In these
phrases rests the heart of PDF’s strategy: linking our dreams for tomorrow with the
necessary tasks of today. Let us explain.
People Advancing Science. In this dimension of our work, PDF harnesses the
energies of committed doctors, gifted scientists and generous donors to push the
science forward in the quest for new Parkinson’s treatments and — ultimately — a
cure for the disease. This commitment has been at the core of PDF’s research
strategy since the organization was created more than a half-century ago.
This research — investigator-initiated and rigorously reviewed by peers and
people with Parkinson’s — takes many forms. One could be the individual scientist in her laboratory, studying potential disease-modifying treatments for Parkinson’s. A second could be the work of a diverse panel of experts exploring the
debilitating impulse control disorders that affect so many people with Parkinson’s.
A third could be the long-term collaborations of a university-based research team
exploring the role of genetics in Parkinson’s disease.
In addition to the communities of doctors, scientists and donors who have traditionally led this work, PDF includes a fourth community: lay advocates in the scientific process, trained and deployed by PDF though in-person trainings and an
online course. Through this program, known as Parkinson’s Advocates in Research (PAIR), people touched by Parkinson’s can join our network of more than
230 Research Advocates from 42 states who are working to bring about better
treatments at a faster pace. These individuals are taking on a variety of challenges, including recruiting individuals for drug trials, providing advice to industry
and federal regulatory agencies, and educating support groups.
3 | Letter from Leadership
Letter from Leadership
Science Informing People. As much a philosophical precept as it is a program strategy, placing information and education on the firm basis of science is a
core principle at PDF. Whatever the medium — our publications and newsletters,
our popular website, our online educational seminars, or our online programs of
professional education for nurses and physical therapists — PDF serves as an entrepot of relevant, timely and authoritative knowledge and information on Parkinson’s. Our goal is simple: to identify the questions that are uppermost on
people’s minds and then to give them answers they can rely on, based on the
best science available.
Many of you who read this report will be the people who already support
PDF’s work financially. It is your generosity that powers our work — on the one
hand, advancing, through research of the highest quality, our understanding of
Parkinson’s disease, and on the other, through science-based education, improving the lives of people who are touched by the disease. To these people, we
offer our heartfelt thanks for all that they have done to date to advance our work,
and we hope that they will continue to ride with us on this journey.
We invite you to read this report carefully and to contact us at any time if you
have questions about our work or about Parkinson’s in general. In the meantime,
we wish you good health and happiness during the balance of the year.
Sincerely yours,
Robin Anthony Elliott
Howard DeWitt Morgan
President
Chair, Board of Directors
Impact: Biennial Report 2012-2013 | 4
Supporting promising, crowd-sourced, peer and patientreviewed scientific ideas that advance the knowledge of Parkinson’s.
Our comprehensive strategy is focused on three results: solving the mystery of its causes, developing new treatments for those who live with
the disease and ending Parkinson’s disease forever.
5 | People Advancing Science
David Sulzer, Ph.D.: Finding Potential Targets for Preventing or
Treating Parkinson’s
Although the vast majority of cases of Parkinson’s disease (PD) have no known genetic cause,
among those that do run in families, the most common mutations occur in the LRRK2 gene (leucinerich repeat kinase-2). Now, researchers led by Ana
Maria Cuervo, M.D., Ph.D., at Albert Einstein College of Medicine and David Sulzer, Ph.D., at PDF’s
Research Center at Columbia University Medical
Center, funded in part by PDF, have shown for the
first time, why the faulty LRRK2 protein is harmful,
and how it can block the normal cell recycling
process. This research was published in the March
3, 2013, online edition of Nature Neuroscience and
builds upon earlier work also funded by PDF.
Normal cells, including those in the brain, use a
recycling and waste disposal system to stay healthy.
The process — known as chaperone-mediated autophagy — begins when molecules called chaperones patrol for damaged proteins and then
transport them to a recycling center (the lysosome).
After arriving there, the damaged proteins travel to
the interior region of the lysosome, where they are
broken down into components that can be reused.
Drs. Cuervo and Sulzer showed that chaperone-mediated autophagy was capable of recycling
healthy LRRK2 proteins, but it was not as successful
in breaking down those LRRK2 proteins that had
the mutation found in people with Parkinson’s disease. In addition, these faulty LRRK2 proteins then
prevented other proteins, such as alpha-synuclein
(a protein that causes PD), from getting broken
down and recycled.
The studies of Drs. Cuervo and Sulzer over the
years have spotlighted the need for developing
therapies that can help restart or speed up cellular
recycling — therapies that could potentially benefit
people whose PD has no known genetic cause as
well as those who have LRRK2 mutations.
Daniel Segal, Ph.D.: Learning from Other Diseases to Find New Treatments
In Parkinson’s disease, the protein that clumps
together and causes the disease is called alphasynuclein. If scientists could stop alpha-synuclein
from clumping in the brain, this could potentially
provide a new treatment for the disease.
With funding from PDF, Daniel Segal, Ph.D.,
of Tel Aviv University, has developed a new molecule, based on quinone, a compound that has been
shown to inhibit certain cellular pathways, that may
be able to do this. His molecule is small enough to
fit into the brain, and is similar to another molecule
shown to stop clumping in the protein that causes
Alzheimer’s disease.
Dr. Segal found that in a petri dish, this molecule was able to effectively prevent alpha-synuclein
from clumping together, and that higher doses were
more effective than lower doses. Now he is testing
the molecule in animal models. His early tests in
fruit flies found that treatment with this molecule resulted in improved motility (measured by climbing
behavior) in PD fly models containing excess alphasynuclein in their brains. He now will extend his testing to PD mice models.
If he finds this molecule to be successful, this
could mean a promising new therapy for Parkinson’s
disease. Of
course, clinical
testing would have
to be done in humans to ensure
that the molecule
is safe and works
the same way in
humans as it does
in flies and mice.
Sheng-Han Kuo, M.D.: Using
Genetics to Find New Treatments
Genes, in ways still unknown, contribute significantly to the risk of Parkinson’s disease. Understanding the genetics of those who live with
Parkinson’s disease may hold the key to finding a
cure. To further our understanding of genetics,
PDF established in 2012 the Lucien Côté Early Investigator Award in Clinical Genetics, which supports postdoctoral researchers and junior faculty
in the New York City metropolitan area who are
studying the genetics of Parkinson’s.
One of the first recipients of this award was
Sheng-Han Kuo, M.D., of Columbia University
Medical Center, who is using induced pluripotent
stem cells (iPS cells) to study how changes, or
mutations, to certain genes may cause PD. iPS
cells are skin cells from people with Parkinson’s
disease that have been chemically induced to
develop into dopamine neurons, which are the
cells that are lost in the brains of people with PD.
Dr. Kuo is studying dopamine neurons derived from skin cells that have a specific change
to a gene called GBA (the full name is glucocerebrosidase). He wants to determine how changes
to this gene affect normal function in the brain,
especially how they affect the clumping of alphasynuclein (a protein that causes PD). Past studies
in rats have shown that changes to the GBA gene
do cause clumping of alpha-synuclein in the
brain. Now the goal is to see if this clumping
also occurs in human brain cells containing the
GBA mutation, and the mechanisms by which
this happens. This knowledge may potentially
lead to the development of new PD treatments.
Since 2000, PDF has provided over $69
million to more than 400 scientists as part of
a comprehensive and multifaceted approach
that supports both research and training.
“THE PARKINSON’S DISEASE
FOUNDATION HAS PROVIDED
ME WITH CRITICAL SUPPORT
TO CONTINUE MY PARKINSON’S
RESEARCH
EARLY
PHASE
IN THE
OF
MY
”
CAREER DEVELOPMENT.
Sheng-Han Kuo, M.D.
Columbia University Medical Center
Antonio Strafella, M.D., Ph.D., and Mark
Stacy, M.D.: Understanding Impulse Control
Disorders in Parkinson’s Disease
The PDF Conference Award program was launched in 2012 to support
gatherings of experts in the field to address emerging clinical or basic science questions about Parkinson’s. Two of the initial recipients were Antonio Strafella, M.D., Ph.D., of Toronto Western Hospital and Mark Stacy,
M.D., of Duke University. Together, they used the PDF award in conjunction with other funding to gather clinical and preclinical experts from various research backgrounds to develop a strategic plan for studying the
debilitating impulse control disorders (ICDs) that affect so many people
who have Parkinson’s.
ICDs can be a side effect of dopamine agonist therapy and include
binge eating, compulsive gambling or shopping and increased sexual behavior. The conference, “Impulse Control Disorders in Parkinson’s Disease,” was held in October 2012 and featured experts from fields including
neurology, psychiatry, neurobiology, pharmacology, addiction, neurologic
imaging and epidemiology.
This multidisciplinary meeting addressed the spectrum of symptoms
associated with ICDs, and generated new ideas for clinical, experimental
and translational approaches to better understand ICDs. It also facilitated
interaction and collaboration among experts from diverse fields, and developed a network of interested scientists and clinicians to further study
the disorder. The proceedings of the conference will be published in
Movement Disorders.
Benjamin George: Measuring the
Benefit of “Virtual” Office Visits
Could we be returning to the tradition of
seeing our doctors at home? This is the concept
of telehealth. But how does it compare to conventional in-person medical care?
Investigators led by E. Ray Dorsey, M.D.,
M.B.A., at Johns Hopkins Medicine, and including
PDF Summer Fellow Benjamin George, recently
found that people with Parkinson’s may benefit
from a consultation with a specialist via online
video conferencing from home, providing an alternative to traveling to an in-person appointment. These findings appeared in a study
published on March 11, 2013, in JAMA Neurology. This study is one of the first to investigate
whether telehealth appointments are feasible and
beneficial to people with Parkinson’s disease.
Researchers measured the participants’ quality of life and PD symptoms, and found the same
results for individuals, regardless of whether they
saw a doctor in-person or via video conference.
In addition, compared with in-person visits, each
"virtual" visit saved participants, on average, 100
miles of travel and three hours of time. Although
the number of participants in this study was
small, the results provide encouragement that
video conferencing with a specialist can provide
similar benefits to people with PD as in-person
visits, while reducing the time and expense of
seeing the doctor.
However, before virtual visits become a reality,
researchers must conduct studies with larger numbers of participants, and with participants of more
varied socioeconomic backgrounds. In addition,
issues surrounding technology and insurance reimbursement and rules in the United States that
require doctors and the person being treated to
be in the same state, will need to be resolved.
“THANK YOU FOR PROVIDING
THE FUNDING TO ALLOW ME
TO CONTINUE TO CONDUCT
RESEARCH TO FURTHER UNDERSTAND AND IMPROVE ACCESS
TO
DIVIDUALS
CARE
WITH
FOR
IN-
PARKIN-
”
SON’S DISEASE.
Benjamin George
Johns Hopkins Medicine
PDF Research Advocates: PAIRing Up to
Advance Parkinson’s Research
PDF believes that better treatments can be found at a faster pace
when people with Parkinson’s are primary partners in research alongside
scientists, industry and government. Since its founding in 2008, PDF’s
Parkinson’s Advocates in Research (PAIR) program is making this partnership a reality. Here are some of the ways in which these 230 volunteer
advocates from 42 states are actively changing how research is done:
• Rich Hoffman, Pharm.D.: Speeding Drug Development
"As a Consumer Representative with the US Food and Drug Administration, I represent the urgency of people with Parkinson’s, while helping
to ensure that potential new drugs are effective and safe."
• Steve DeWitte: Increasing Trial Participation
"When I ask people with Parkinson’s why they are not involved in research studies, many reply, ‘Because I have no transportation.’ My solution was launching the Clinical Trial Transportation Program (CTTP).
By partnering with Beth Israel Deaconess Medical Center in Boston, MA,
and Columbia University Medical Center in New York, NY, CTTP has
helped 37 volunteers to participate in studies by driving them to these
two medical centers.”
• Jane Denmark: Informing the PD Community
“This is a hard disease. The only way we are going to speed up the pace
of drug development is by getting involved in research. As PDF Research
Advocates, my husband Al and I bring this critical message to support
groups, health care professionals and students in our community."
“AS
A
A DOCTOR AND
RESEARCHER,
I
BELIEVE THAT WHEN
WE PARTNER WITH
THESE INFORMED RESEARCH ADVOCATES,
THAT IS WHEN WE
WILL
SEE
TRUE
CHANGE IN PARKINSON'S RESEARCH.”
Joohi JimenezShahed, M.D.
Baylor College of Medicine,
PAIR faculty and steering
committee member
Developing science-based educational programs that respond to
the expressed needs of people with Parkinson’s and health care professionals and collaborating with patient and professional organizations
throughout the community.
11 | Science Informing People
Using Online Programs to Reach New Communities
Recognizing the need to provide people with
Parkinson’s and health care professionals with research updates and strategies for living well with
the disease, PDF continued in 2012 and 2013 its
popular PD ExpertBriefings series. Subjects for the
one hour online seminars are selected based on
surveys of people with Parkinson’s, and the faculty
are experts from around the US. More than 15,000
individuals from 43 countries participated in at least
one PD ExpertBriefing. Topics covered included:
• Driving and Parkinson's: Balancing Independence
and Safety (Margaret O’Connor, Ph.D., A.B.P.P.,
and Lissa Robins Kapust, L.I.C.S.W., Beth Israel
Deaconess Medical Center)
• A Closer Look at Anxiety and Depression in
Parkinson's (Laura Marsh, M.D., Michael E. DeBakey Veterans Affairs Medical Center and Baylor
College of Medicine)
• Parkinson's Medications: Today and Tomorrow
(Cynthia L. Comella, M.D., F.A.A.N., Rush University Medical Center)
• Understanding the Progression of Parkinson's
(Ronald F. Pfeiffer, M.D., University of Tennessee
Health Science Center)
• What is New in Genetics and Parkinson’s Disease?
(Matt Farrer, Ph.D., University of British Columbia)
• Coping Skills for Parkinson’s Care Partners (Julie
H. Carter, R.N., M.S., A.N.P., Oregon Health & Science University and Parkinson Center of Oregon)
• Gait, Balance, Falls and Parkinson’s (Terry Ellis, P.T.,
Ph.D., N.C.S., Boston University College of Health
and Rehabilitation Sciences: Sargent College)
• Under-recognized Nonmotor Symptoms of PD
(K. Ray Chaudhuri, D.Sc., M.D., F.R.C.P., NPF International Centre of Excellence, Kings College London)
• Medical Therapies: What's in the Parkinson's
Pipeline? (Kapil Sethi, M.D., F.R.C.P., Georgia
Health Sciences University)
• Improving Communication in Parkinson’s Disease:
One Voice, Many Listeners (Angela Roberts-South,
C.C.C.-S.L.P., Ph.D. Candidate, Western University)
As of September 2012, continuing education
credits have been offered to health care professionals — social workers, occupational therapists and
others — who participate in these seminars. Although these professionals work with people with
Parkinson’s, they often receive very little training on
the disease. CEUs are managed through PDF's
sponsorship of the American Society on Aging.
“THE
INFORMATION
PRO-
VIDED IN THESE PD EXPERT-
BRIEFINGS
HAS
HELPED
OUR FAMILY AS WE MAKE
THE PARKINSON'S JOURNEY
TOGETHER.
WE NOW FEEL
PREPARED TO DEAL WITH
THE CHALLENGES THAT WE
”
KNOW WE WILL FACE.
Elise C., Ramsey, NJ
Improving Resources for NonEnglish Speaking Communities
As the number of non-English speaking individuals increases in the United States, the
need for resources for these communities continues to grow. In fact, by 2050, the Hispanic
share of the elderly population is expected to
almost triple to 17 percent from six percent in
2005. Since age remains the biggest risk factor
for Parkinson’s, the prevalence of the disease in
this community is expected to increase.
PDF is committed to ensuring that all people — regardless of who they are, where they
live, what language they speak or how much
money they have — receive needed Parkinson’s
information and resources. In 2012, PDF expanded our HelpLine to include interpreters
who are available to speak with callers in Spanish and more than 200 other languages. Our
HelpLine is staffed by a team of information
specialists who can answer questions about
Parkinson’s treatment and care, identify legal
and financial resources and provide referrals to
doctors and support groups where available.
PDF also expanded our line of educational
materials available in Spanish to include fact
sheets on topics such as deep brain stimulation
(DBS) as a treatment of Parkinson’s, care partner
concerns, the role of hospice in Parkinson’s
care, managing Parkinson’s medications and understanding pain in Parkinson’s. In 2012 and
2013, more than 5,000 individuals requested information in Spanish.
Since 2007, PDF's HelpLine has responded
to inquiries from almost 50,000 individuals
around the world as part of its commitment
to ensuring that everyone has access to
Parkinson's information and resources.
13 | Science Informing People
“I
AM EVER SO APPRECIA-
TIVE OF YOUR THOROUGH
RESPONSE. OUR FAMILY BELIEVES IN THE POWER OF
TEAMWORK, RESEARCH AND
ACTION. UNDERSTANDING A
DISEASE HELPS US ALL FEEL
EMPOWERED TO HELP ONE
”
ANOTHER.
Sylvia G., Yuma, WA
Educating Physical Therapists About Parkinson’s
While no treatment can prevent or reverse Parkinson's, research suggests that physical therapy can help improve strength, fitness level, walking speed and balance, leading to reduced disability and greater
independence. Unfortunately, there is a lack of trained physical therapists to care for the growing Parkinson’s community.
To address this need, PDF launched in April 2012 a free online course,
“Parkinson’s Disease: A Practical Approach to Evaluation and Treatment
for the Physical Therapist.” The course was designed by expert physical
therapists in the field of Parkinson’s to help other physical therapists provide better care to people with the disease. PDF led the development of
this course in collaboration with the American Parkinson Disease Association (APDA), the American Physical Therapy Association (APTA) and the
Visiting Nurse Service of New York (VNSNY). The course includes ten educational sessions and two interactive panel discussions. Since its launch,
more than 6,000 physical therapists have participated in this program.
This program was made possible with the support of Kenneth M. and
Susan Granat Weil in memory of John and Joan Haine; the Edmond J.
Safra Philanthropic Foundation and the American Physical Therapy Association. It also received kind support from Rusk Rehabilitation at NYU
Langone Medical Center. Additional promotion was provided through
our media partners, which include the Houston Area Parkinson Society,
National Parkinson Foundation, Northwest Parkinson's Foundation and
Parkinson Association of the Carolinas.
“THIS COURSE PUTS
THE
LATEST
EVI-
DENCE-BASED FINDINGS IN THE HANDS
OF
PRACTITIONERS
AROUND THE COUNTRY TO HELP THEM
PROVIDE THE BEST
CARE POSSIBLE.”
Terry Ellis, P.T.,
Ph.D., N.C.S.
Clinical Associate Professor at Boston University’s
College of Health and
Rehabilitation Sciences
Thanks to the generous support of nearly 36,000 donors, the
Parkinson’s Disease Foundation (PDF) funded almost $10 million in
research throughout the world and over $3 million in national education
and advocacy programs in fiscal years 2012 and 2013. PDF gratefully
acknowledges the following donors who helped us make an impact.
15 | Our Donors
Our Donors
The following individuals, families, foundations and corporations have made cumulative
gifts of $500 or more to PDF between July 1, 2011 and June 30, 2013.
Individuals
Colman and Nancy Abbe
John Ayer
Robert and Georgean Abels
Kenneth Ayer
Andrew Abramson
Charles Babcock and
Nancy Hamilton
Mark G. Ackerman
Stephen and Marsha Ackerman
Peter Adams
Steve and Rebecca Adams
Todd Adams
Brigitte Addimando
Allison Adkins
David Adler
Meeta Advani
Dr. Avadesh and Uma Agarwal
Roger E. Ailes
John and Susan Akers
Robert and Toni Bader
Sara Badler
John and Susan Baer
J. Edmonds Bafford
Patricia P. Bailey
Gerson and Barbara Bakar
William and Sharon Baker
Alex Balanevsky
PDF Champion Sean Wright and family
at the 2012 Marine Corps Marathon
Inga Balke
Buck and Leslie Balkind
Byrd and Alice Ball
Herschel and Rita Bloom
Florence Barad
Deborah Berman and
Bruce Greenberg
Benny Barak
Bernard Berner
Drs. David and
Jane Bloomgarden
Katie Barrow
Arnie Bernstein
Theodore and Flora Blumenthal
Eric and Melba Anderson
Kathy Barthlama
Josh Bernstein
James Bobo
Joe Andronaco
Doris Bato
Richard A. Bernstein
Ernest and Rita Bogen
Nicole Angell
Peter M. Bauer
Neil and Marilyn Bersch
Richard Bohlen
Anonymous (8)
Millie Bayne
Danny Bone
Gene Anspach
Lawrence and Sandra Beal
Mr. and Mrs. David M.
Berwind, Sr.
Mr. and Mrs. Thomas S.
Alexander
George and Jodie Allen
Richard Anthony
Michael and Marcia Beck
Toni Arai
Bruce and Carol Bell
Britta Arendt
Mr. and Mrs. Frank M. Bell, Jr.
Salvatore and Ruth Armenio
Janet and Lawrence Bell
Daniel Armstrong
Don and Carol Bender
Jeffrey and Shari Aronson
Tom and Anne Benedict
Dr. Marian Ashraf
Alison Benge
Simon Asselin
Robert L. Benjamin
Edgar Astrove
Elizabeth S. Bennett
John and Anne Atherton
Robert Benton
Allan Atmore
Ron Bergamo
Evan Avidane
James and Suzanne Bergoffen
Michael Axelrod
Fred Bering
Norman and Alison Axelrod
Donald Berkowitz
David and Jo Anne Bescherer
Roger Bonga
Beth Besen
Robert Book and
Marcy Helfand
Caryn Biancosino
Dr. Doyle Booker and
Linda Booker
Claudette Bidgood
Louis and Anne Krementz
David Binder
Simran Bindra
Jules and Helen Bingham
Kyle Blackmon
James and Shirley Blackorby
David H. and Mary B. Blair
Lawrence Blaskopf
Richard Bleikamp
Sean and Rosanne Bloodwell
Edward C. Booth
Mr. and Mrs. Lee Boothby
Patrick and Martha Boudewyns
Dierdra Bowditch
David Bradford
Kyle Bradstreet
Norman and Linda Braverman
Andrea Cervantes Brennan
Michael and Tracess Brenner
Irving G. Brilliant
Karen Brimberg
Individuals
Toby Brimberg
Andrew Callan
Carol C. Clark, Ph.D.
Sally Cross
Jayne Brindle
Pete Campbell
Elizabeth Clark
Jennifer Csorba
John and Patty Brissenden
Scott Campbell
Aaron and Wendy Clayton
Gene and Judi Curry
Jill and Ken Brodkowitz
Joaquin and Angela Campo
Michael Cloonen
Edna Curtis
Mr. and Mrs. Jed Brody
Jose and Lourdes Campon
Mark Coatney
Joseph D'Amadeo
Dr. William Coggshall
Stephen D'Amato
Robert and Joni Cohan
Guido D'Elia
Dayl Cohen
Burke Dambly
Suzanne Cohen
Cynthia Danel-Frankovitch
Alan and Betsy Cohn
Mr. and Mrs. Phillip A. Daniel
Gerard Cole, Jr.
John Danstrom
Ray and Claudia Cole
Ernest Dampf
Brenda Collins
William Darnton
Susan Comparato
Ted and Gerald Davenport
Dr. Valerie Cooke
Diana H. Davis
Mr. and Mrs. Thomas A. Cooper
Mr. and Mrs. Monty Davis
Katharine T. Cornelius
Richard Davis
Robert and Rhea Corrion
Elizabeth de Lima
Robert Cortelyou
Edwin Lee Solot and
Marie De Lucia
Robin Elliott (left) with Isobel Konecky and
Family at the 2012 Bal du Printemps
Jay Cossentine
David and Angela Brown
Mr. and Mrs. William Canata
Dr. and Mrs. Lucien Côté
Doug and Julie Brown
Dr. Jeff and Dieta Cao
Mr. and Mrs. Michael Cotton
James S. Brown
Robert and Mary Capaldi
Norman and Helen Coulson
Rachael Brown
Ray Capitanini
Dr. C.W. and Deborah Cowles
Drs. Russell and Susanna Brown
Sharon Cardinal
Gabrielle Crandall
Steven Bruck
Peter and Nadia Cardozo
William and Clare Cribbin
Vivienne Bruckman
Mr. and Mrs. Raymond W. Carlin
Cary Cridlin
Christian Bruner
John K. Castle
James Cronin
Bunyan Bryant
John and Margo Catsimatidis
Lee Buchheit
Joseph Curci and Lisa Centone
Mary Anne Buchheit
Michael Cerussi
Don Buchholz
Mr. and Mrs. Bernard D. Chalfin
Mr. and Mrs. Mark Budd
Alfred and Nancy Chandler
Lieselott Buettner
Gary and Beth Ann Chard
Michael and Joan Burke
Carol Chase
Dr. Robert Burke and
Dr. Sharon Wardlaw
Julie Burma
John and Barbara Burns
Peter and Barbara Bye
Julie Byrne
Diane Calder
Denis Callaghan
17 | Our Donors
Dennis De Pietro
Michael DeGeorge
Patricia DeGeorges
Dr. Maria De Leon
James Dellinger
Cindy DeLuz
David Dennis
Anthony DePaolo
Charles and Virginia Detoy
Mr. and Mrs. Adam Chasnow
Fu Tzu Chen
Terry and Brooke Cheng
Thomas Cherner
The Chiaro Family
Anthony and Patricia Cilluffo
Wayne Citrin and
Deborah Arhelger
Guests enjoy CARNAVAL 2013
Our Donors
Vincent and Jeanine Fatato
Alan and Marion Garfield
John Fatteross
Diane Garrett
Mark Faught
Gary Garrison
Burt and Noelle Faure
Thomas Garrison
Gian Favalli
David and Gail Gasser
Leonard and Gloria Fazio
Gary and Ellen Johnson
Andrew and Michelle Feinberg
Debra Gaynor
Dr. Daniel Feinberg
Willie and Christina Geist
Steven Feldman
Vic and Joan Gelb
Julia Ferguson
Seth Gelblum
Eda Ferman
Venita Georgieff
Richard and Schuyler Field
Adeline Gersen
Philip Fierro
Gerald Z. Gibian
Debbie Finkel
Joel Gibson
Roger C. Dunn
Eric and Keryn Fishman
Nora Gibson
Michael Deutsch
John Dwyer
Scott Fitcher
Dr. George and Anisia Gifford
Mr. and Mrs. Chris J. Dicharry
Brian and Karen Eckhart
Thomas and Barbara Fleming
Robert M. Gilhooley
Mark Dickinson
Hollis and Sharon Eddins
Anthony and Patricia Forgione
Eric Gillert
Ervin and Karen Dieckhoff
Mark D. Edie
Mr. and Mrs. Alan J. Forman
Christopher Gillock
Abbie Edwards
Andrew and Jean Fornato
Robert and Gail Ginsberg
Willie and Christina Geist at
the 2013 Bal du Printemps
Alvin Deutsch
Neal Dimick
Albert Diringer
G. Pennington Egbert III
Cathy Forsberg
Don Ginsburg
Aida S. Dishman
Adele Eger
Dr. and Mrs. Brian Forst
Catherine Giordano
Drs. David and Jane Eger
Jack Fortinsky
Gerald and Deanne Gitner
Michael and Barbara Ditzian
Ronald A. Eger
Dr. Craig and Blake Foster
Jeffrey Gittleman
Kathleen and Eamonn Dolan
Roberta Ehre
Mr. and Mrs. Thomas D. Fowler
Seymour and Rita Glanzer
Jorge and Mary Dominguez
Frances Ehrlich
Dave and Jill Fox
Jerry Glennie
Juan Dominguez, Esq.
Joanne Eickhoff
Patrick Franc
Roger and Sandra Goetti
Charlotte Einstein
Jonathan Franzen
Morton and Claire Goetz
Anthony DiVito
Edward Dondzila
Mr. and Mrs. Francis
Donnantuono
Michael Donnantuono
Julie Donovan
Neil Doppelt and
Audrey Adams
Vicky Dorn-Fontana
Krista Douglas
Ezra and Elizabeth Doverman
Richard and Sarah Draut
Craig and Monica Drill
Jennifer Drinan
Chris and Jill Drury
Ryan Duffy
Richard and Jane Dunbar
Ronald and Nanette Elenbaas
Mr. and Mrs. Stuart Fraser
Capt. Lewis and Ada Goldbek
Stafford Elias
Dr. Jay Freed
Allan Goldberg
Diane Elliott
Gary and Carol Freidman
Stephanie Goldman-Pittel
Robin A. Elliott and
Dr. Sheila Gordon
Rick and Shelley Friedland
Amy Goldman
John Ellis
Samuel and Maryann Ellsworth
Stephen Ellis
Kim and Lizabeth Erickson
Arnold and Shirley Erickson
Mr. and Mrs. Jeffery Ettinger
Dr. Stanley and Charlotte Fahn
Fernando U. Fajardo
Steven Farber
Dr. and Mrs. Lawrence Friedman David Goldman
William C. Friend
James and Sarah Goldman
Elizabeth B. Friou
Molly Goldstein
Meyer and Florence Frucher
Joseph and Mary Golemme
Dr. Paul Fuchs
Mr. and Mrs. Benjamin Gomez
Mark Funderburk
Dr. Robert R. Goodman
F. Daniel and Bunny Gabel
Scott Goodman
John and Cynthia Gallagher
James and Ann Gordon
Ronald and Kroupa Galowich
John Gordon
Sarah Belk Gambrell
Patrice Gordon
R.T. Farmer
Individuals
Dr. Simone Gordon
Stuart Gross
Nancy Harold
Timothy and Tracy Hilbert
James T. Gottwald
Henry Strater and
Lillian Grossman-Strater
Dr. Steven G. Harper
Richard L. Hildbold
Janet Harris-Ahl
Roger Hildeen
Charles Harris
Lane and Laura Hill
Mark Harrison
Sara Hill
Randy Hartshorn
Mallory Hiltz
Lauren Hauser
Jerry and Joyce Hirsch
Jeffrey Havsy
Robert Hirsch
Gregory and Sharon Hawkins
Olga Hirshhorn
Dr. and Mrs. Joseph Hawkins
James Hirst
Mr. and Mrs. Richard Hay
Ian Hodgson
George Hebard
Monty Hoeflein
Peter John Goulandris and
Dr. Karen E. Burke
Mr. and Mrs. Peter Grad
Bill and Rhea Grous
Leonard and Jennifer Gruenberg
PDF Champion Margaux Minutolo (left) and
friend modeling Mind Over Matter T-Shirts
Susan Heidenberg
Elizabeth and Marvin Hoekstra
Dr. John and Peggy Heilman
Mr. and Mrs. F. William Hoffman
Dr. Sydney and Roslyn Helfen
Mr. and Mrs. Joseph Hoffman
Mr. and Mrs. Lewis Helfstein
Mr. and Mrs. Neil Hoffman
Michael Hencel
Philip and Mary Hogan
Richard and Rose Henneberger
Stephen and Margot Holland
Patrick Henry
Joseph and Jean Holman
Troy D. Henry
Alexander Holtzman
Stephen L. Graessle
G. Guist and Robin Guist
Margaret S. Herold
Joan Hornig
Joan Graham
Geoffrey and Sarah Gund
Tino and Rosie Herran
Mr. and Mrs. Hornstein
Sharyn L. Gunderson
Mr. and Mrs. Stuart A. Hersch
David Horwitz
Rachel Granger
Arlen R. Gunner
Dr. Daniel and Natalie Hertz
Rev. and Mrs. Alanson Houghton
Dr. Michael and Dena Granhof
Chris Gunner
Mr. and Mrs. Steven Herzog
Thomas and Anne Hubbard
Richard and Marcia Grand
Christine Grant
Jon and Stevi Gurkoff
Steve and Toby Hess
Patricia Huggard
Clair Grant
Andrew Gustin
Steven and Sherry C. Hibshman
Craig and Lane Huggins
Mr. and Mrs. James Graves
Mark Guzzi
William and Mary Hicks
Risto Huovinen
Kent Gray
Lois Gwinn
Michael Gray
Eleanor Hagan
Joshua Greenberg
Scott Hahn
B.J. and Howard Greenberger
Barry and Jane Haimes
Robert W. Greene
Alyce C. Halchak
Sherwin Greenwald
Dr. William and Katherine Hale
Nicholas and Marjorie Greville
John Haley
H. Duane and Sandra Griffin
Jennifer Hallenbeck
Mr. and Mrs. John Scott Griffin
Christina Halpern
Lisa Griffin
Jeffrey Hamer
Richard Griffith
Norma Hammond
Scott and Susan Grodnick
Sulabha Hardikar
Lexi Gross
J. Alan and Karen Harding
Pete and Emily Gross
Gilbert Haroche
19 | Our Donors
Stephanie Goldman-Pittel (left), Jerry and Arlene Levine
(center) and Robin Elliott at the 2013 Bal du Printemps
Our Donors
Christopher Keber
Kenneth and Cheryl Kuliga
Judithann C. Keefe
Howard and Gail Kunreuther
Dr. David L. Keller
Barbara Kyse
Douglas Keller
James Lacroix
Denise Kellogg
Patrick Lagrange
Edward and Kathleen Kelly
Rutherford C. Lake, III
Dolores Kennedy
Louise Lallier
John Kiernan and
Catherine Ruvolo
Elina Lam
Mary and Franklin Kilgore
David and Hyun-Min Kim
Genna Farber, Stevi Gurkoff, Jon Gurkoff, Gene
Gurkoff (front row left to right) and David Farber, Kate Drury and Jack Drury (back row left
to right) at the 2102 Bal du Printemps
Francis Hyman
Andy and Margo Illobre
Mark Indelicato
Gary Irwin
Howard Isermann
Clifford Ishmael
John Isley
Nancy Isserlis
Ralph and Barbara Italie
William and Judith Jackson
Alan and Barbara Jacobs
Randi S. Jacobs
Selwyn and Marjorie Jacobs
Ben and Martha Jacoby
Peter and Karen Jakes
Molly and Marshall Janes
Allan Janoff
April Jansen
Raymond Jasen
Judi Jecmen
William Jeffery
Charles Jenkins and
Jeni Forshier-Jenkins
Kevin P. Johnson and
Laurel E. Johnson-Smith
Larry Johnson
Mary Johnson
Thomas Kimbis
Dr. and Mrs. William King
Stubbs
Dr. Lenny LaManna
Scott and Ann Landes
Steve and Keala Landry
Mark Lane
Robert and Susan Larson
Kevin and Sarah King
Robert O. Laven
Donald and Bonnie Kinzer
Pauline M. Lecomte
Lori Kirsch
Bennie and Donna Lee
Kevin Kissell
Mr. and Mrs. Gregory Lee
Dr. and Mrs. Francis l. Kittredge
So Young Lee
Andy Klein
Brian Leffler
Jayne Klein
Mark and Gaby R. Lehrer
Gary M. Kleingartner
Thomas A. Lehrer
Dr. David L. Klionsky and
Eva Youshock
Jill Leinbach
Thad and Suzanne Johnson
Wes Johnson
James Knowles
Walter F. Leinhardt
David and Carolyn Jones
Suzanne Knowles
Herbert and Barbara Lembcke
Lauren Jones
Edgar and Eileen Koerner
Sally W. Leung
Nathaniel and Judith Jones
A. Kohn and Barbara Kohn
Drs. Ilan and Barbara Levi
Eleanor N. Jordan
Shiro Koike
Dina L. Levin
Reynold and Margaret Jordan
Patricia Kolb
Jerome and Arlene Levine
Colleen Joyce
Isobel R. Konecky
Dr. Irwin and Francine Levine
Dr. Daniel Judd
John and Cheryl Korth
Burt and Mary Ann Lewis
Andrew Kampf
Marcia and Walter Kortschak
Kevin Lewis
Vikram Kanda
Kay Kowitt
Melanie Lewis
Daniel and Susan Kane
David and Susan Kraus
Wesley and Diann Lewis
Robert and Jane Kantor
Myer and Phyllis Kravetz
Dr. Stanley and Anita Liebowitz
Gary M. Karlitz
James Kress
Mr. and Mrs. William Lifland
Dr. George Karnoutsos
Mark B. Kristof and
Beth V. Ward
Paula Lightfoot
Gloria Kronenberg
John and Catherine Liguori
Mr. and Dr. Rhett Krulla
Richard Linhart
Charles Krusen
Joan Lipkowitz
Mr. and Mrs. John Kuelbs
Joseph Liss
Robert Kuhbach
Dr. Nan and Doug Little
Michael Johnson
R.A. Johnson
Rhona Johnson
Ronald Johnson
Lynn and Sue Jenkins
Richard and Jane Karp
Maurice and Linda Jennings
Arnold A. Katz
Beverly Jensen
George Kaufman
Mr. and Mrs. Arthur P. Jentoft
James Kaufman
Charles and Linda Johnson
Arlan and Lori Kay
Donald and Marian Johnson
Paul Kebabian
Laurie Leiner and Morton Katz
Individuals
David Littleton and
Susan Stevenson
Robert LoBue
William Lockeretz
Arnold and Pamela Loeb
Marshall Loeb
James Long
Robert A. and Joan H. Long
Robert Lonier
George and Priscilla Matouk
Catherine Mock
George Newmark
Ray Matra
Gina Modica
Joan Nicolais
Diane Matusiak
Eric Moede
Sally Nightingale
William and Natalie Mauskopf
Donna Mondani
Agnes E. Nixon
Robert M. Maxwell
David Moody and
Eileen Guilfoyl
Marla E. Nock
Michael and Jessica Mayerson
Theodore Maynard
Alexander and Marianna
McAfee
Mr. and Mrs. Robert E. Moore
Miriam Moran
Howard and Ginger Morgan
Edward J. Noha
Maryellen Noreika
Robert S. Northington
Sabato Noto
Evelyn Lord
Mr. and Mrs. Kevin McCabe
James and Laura Morgan
Mary Love
Alexandra McCagg
John and Debbie Morken
Dr. Jack and Lenore Lowenthal
Dr. Wesley McCain
Deborah Morrow
Dina Lowy
Randall T. McCallum
Pam Moshe
Harry Luebbe
Maureen McCarthy
Erin Montameni
Terrance O'Bar
Joseph Luetje
Robert and Marsha McCleary
Patrick and Debra Mucci
George and Barbara O'Connor
Walter Lyczkowski
Mr. and Mrs. Todd McClutchy
Sheila Muldoon
Patricia O'Donnell
William and Louise Lydic
Michael and Cynthia
McConnell
George and Ellie Munroe
Daniel O'Neill
Kenneth Musen
Carol Okane
Jean Myers
Aksel and Kamma Olesen
John Myers
Marie Oliver
Catherine Nabulsi
John and Marnie Olson
Dorotea Nathan
Walter and Gloria Olson
Michael Mackey
Darin Magedanz
Erin McGarry Cubero
John and Helen McGrath
George R. and
Linda L. Mahoney
W. McMillin
Mr. and Mrs. Burton C. Mallory
Iris McQuistion
Larry and Janis J. Malone
Paul and Kay Meister
Terence Malone
David P. Melillo
Reid and Jeanne Mandel
Dr. Vincent Memoli
Virginia Mankin
Andrew and Gigi Menard
Vincent Marano
Dr. Robert Mencher
Adam Margolis
Gerardo Mendez and
Melissa Roth Mendez
Sidney and Phyllis Margolis
Linda Markeloff
Leon Markoff
James Markowski
Lizzy Markus
Anna Merker
Carol Noymer
Mr. and Mrs. Lawrence C.
Nussdorf
Paul and Marcy Nathan
Mr. and Mrs. Timothy Onders
Sunil Nayar
Lila Ontiveros
Douglas and Jean Nelson
Timothy and Nicole Oprisu
Harold Nelson
Richard Orechovsky
Alfred Netter
Dr. Salvatore Orsini
Dr. George Neuman
Aura Oslapas
John New
Marc and Neil Ozanich-McNinch
Dr. Karim Mezran
Thomas Milana
Dr. David Miller
Kay Marmorek
Elizabeth Miller and
James Dinan
Stephen Marotta
Jim Miller
John Marozzi
Jody Miller
John Marquiss
Richard and Lois Miller
Sharon Marr
Walter and Marion Minton
Adolfo Marrero
Thomas and Marilyn Mints
Christine Martino
Zareen Mirza
David J. Marx
Lawrence and Ruth Misrok
Yvonne L. Mason
Lucile Missimer
Tom and Bev Mathis
William Mitchell
21 | Our Donors
Allan Novak
Peter Dorn (center) and friends at CARNAVAL 2013
Our Donors
Stephen and Judith Pagano
Nicholas and Carol Paumgarten
John Pepples
Donna Pickett
Jeanne Payne
Sura Peter
Nina Platt
Sandy Payne
Amanda Peterson
William Platt
David and Mary Peachin
Mr. and Mrs. Frank A. Petitti
Carol Pogash
Melba Pearlstein, Esq.
George Petras
Drs. John and Susan Pollack
Elaine Z. Peck
Michael and Nancy Peters
Martin and Ruth Pollack
Hugh Patterson
Dr. Timothy Pedley and
Dr. Barbara Koppel
Monica Phifer
Mr. and Mrs. Henry A. Pope, Jr.
James Patterson
Deborah Pelle
Richard and Eleanor Phillips
James and Sandra Porter
Mr. and Mrs. Robert Paglia
and Family
Lisa Painter
Thomas and Jeanette Palizzi
Tony Pallagrosi
Kathy Patrick
Irving G. Brilliant $100,000 Research Challenge and
Light of Day Foundation $100,000 Challenge Supporters
The following individuals, companies, foundations and organizations contributed $500
or more to help PDF meet the Irving G. Brilliant $100,000 Research Challenge and/or
the Light of Day Foundation $100,000 Challenge in fiscal years 2012 and 2013.
Dr. Jack and
Lenore Lowenthal
Ezra and Nilofer Reese
Todd Adams
Ferguson Family Trusts
Thelma R. Balbes
Ronald H. Galowich
James and
Suzanne Bergoffen
Stanley F. Goldfein
Lower Shore Parkinson's
Support Group
Preston Goodrich
Burton Mallory
Rose-Marie H. Boller
The Jack Webster
Grigsby Foundation
Ellen H. Manian
Christopher Rohwetter
D. R. Booker
Wilma P. Hawk
Andrew Menard
St. Jude Medical
Brown Charitable
Foundation
Majorie and William Hill
Bikini Offroad
Henry Richmond
Steve and Teresa Riffle
Sherie Ritzler
MetLife Alico
Stan M. Sandberg
Joseph W. Metz
Arnold and Marie
Schwartz Fund
Mr. and Mrs. Mark Budd
Selwyn and
Marjorie Jacobs
Marion Minton
Denis Callaghan
Eleanor N. Jordan
Andrea Moletteri
Dr. and Mrs. Thomas
Shiftan
Robert Chartoff
Colleen Joyce
Sunil Nayar
James Cronin
Dr. and Mrs. Francis l.
Kittredge
Robert Northington
Mr. and Mrs. Clyde W.
Smith, Jr.
William Cunningham
Vincente T. Dipatre, Jr.
The DuBose Family
Foundation
Bob Duncan
Joanne Eickhoff
Paul Ellis
Epstein, Becker & Green,
P.C.
Barbara Kyse
Dorothy S. Oda
John W. & Laura S.
Stewart Foundation
Rick Oddo
Rebecca C. Swan
John and Marnie Olson
Martin Typer
Mark D. Litt
Michael Opalak
U.M.R. Foundation
Dr. Nan and Doug Little
Peaceful Meadows Farms
Ice Cream
The Light of Day
Foundation, Inc.
Arnold and Pamela Loeb
Lovinger Family
Foundation
Dana C. Puddy
Monica Reed
Mark Viviano
Nancy C. Wheeler
Dr. Fred and Mary
Woodlief
Stephen Reed
Individuals
Margaret Posthumus
Llewelyn and Billie Rentel
Mark Rosen
Ruth Ann Potts
Ian Spencer Rice
Charles Rosenbaum
John Pougiales
Harold and Jane Richard
Jean Rosenberg
Arjun Prabhu
Paul and Takako Richards
Jeffrey and Sarah Pribyl
Alan and April Richstein
Mr. and Mrs. Edward
Rosenblum
Elizabeth Scanlon
Martin and Carol Rosenblum
Donald Schaefer
Melvin S. Rosenthal
Mr. and Mrs. Robert A.
Schaefer, Jr.
Roxanne Rosoman
Dr. Harley and Sara Rotbart
Mr. and Mrs. Steven Rourke
Robert Rouse
Dr. and Mrs. Lewis P. Rowland
Lewis and Gail Rubin
Milton and Adele Rubinfeld
Laurence and Marjorie Quaife
Winifred Quinn Dejesus
Ashley Quinn
Judith Rader
W. Matt and Amelia Ralls
John Raphael
Joshua Raskin
Tim Rath
Leonard and Ruth Rau
Dr. Gregory and
Patricia Schlegel
Antonio Ruiz
Dr. Herbert Schlesinger
Frank Rumuro
Danny and Melesia Rutland
Sanford Schlesinger and
Lianne Lazetera
Jamie Saccardo
Bob Schmitz
Olga Salazar
Jay and Suzette Schochet
Saul M. Salka
Dr. Thomas and Jean Schreiber
Steve and Teresa Riffle
Leslie Samuels
Michael and Janice Shrimmer
Sandra L. Rigopoulos
Stan Sanberg and
Stacey Mayesh
Shelley and Blair Schrum
David Sands
Brian and Kathy Schultz
Hellyn L. Sarek and
Barbara Davis
Howard and Phyllis Schwartz
William F. Ringier
Frank and Nora Joan Ritchey
Sherie Ritzler
Lawrence and Carol Rizzolo
David M. Schuld
Marie D. Schwartz
Mr. and Mrs. Jeffrey D. Roberts
Matthew Roberts
Thomas and Brenda Roberts
Eric Robertson
Sally Robinson
Robert Southern and
Karin Rodgers
Mary Rauhe
Clint Rogers
Edwin and Nancy Redkey
Michael Romano
Michael and Kristin Reed
Robert and Heddie Romanoff
Jonathan Reeves
The Romero Family
Allan Reine
Gregory and Barbara Romero
Kurt Reinsberg
Ralph and Barbara Reis
Robert Roriston and
Sarah Bird
Samuel Rensin
Mr. and Mrs. Jonathan Rosen
23 | Our Donors
Susan Schindler
Steven Schirripa
Jane Safer
Mr. and Mrs. Michael A.
Riddick
Roland Quade
Joseph and Bonnie Schinagle
Mr. and Mrs. Scott Schneider
Warner Price
Bhaskar Pulikal
Gregg Schenker
Michael and Melissa Schilling
Mr. and Mrs. Thomas Schneider
April Rickey
Dana C. Puddy
Anand and Padma Savur
Mr. and Mrs. Albert Safer
Mr. and Mrs. Michael Price
Dr. Serge Przedborski
Scott Sassa
Matthew and Frances Schaeffer
Dr. Stephen Ross
Gregory and Barbara Romero
at the 2012 Celebrate Spring
Lawton Sargent and
Audrey Meyer Sargent
PDF Champion Anna Rinaldo and friends
at the 2013 Vintage Tea Party Event
Our Donors
Mr. and Mrs. Marcellus Snow
Mr. and Mrs. Abbott Stillman
Drs. Paul and Terri Silverman
B. Robert and Mary A. Snyder
Rev. F. Barry and Colette Stipp
Mr. and Mrs. Mark K. Silverstein
Glenn Snyder
Keith Stoltz
Stephen Simko
Mr. and Mrs. Paul W. Snyder, Jr.
Scott Strickland
David and Joy Simon
Perry and Elaine Snyderman
Richard Strobel
J. Robert and Linda Sims
Kenneth and Joanne Sold
Richard and Marcia Sinclair
Amy Sole
Christianna L. Strohbeck and
Dr. Ramaswamy Murari
Nicholas Singer
Phyllis Sonnega
Phillip S. Sirianni, Jr.
Douglas and Ann Spaniol
Samuel J. Sirota
Sue Sperger
Benjamin Slate
David Stagg
Jerome and Susan Slate
Mr. and Mrs. Doug Standley
Mr. Thomas Sutton and
Dr. Marilyn Sutton
Martin Schwartz
Fred Silton
Max and Nancy Schwartz
Frederick and Ruth
Schwarzmann
Rosanna Scotto
Julie Seibert
Edmund and Dorothy Seyfried
Leslie Shapiro
Ronald and Evelyn Shapiro
Missy Egbert Sheehan and
William B. Sheehan
Mr. and Mrs. Sidney J.
Sheinberg
Sharon Sturges
Fred Sullivan
Dr. and Mrs. Ira Sutton
Dr. Lois Sutton
Diane Shenberger
Andrew Slepoy
Mr. and Mrs. Steven Starker
John Sheridan
Rebecca C. Swan
Dr. Bernard and Sheila Small
Kenneth and Alice Starr
Jack and Paula Sherman
Daniel Swanson
Annalise Smith
Athena Starry
Dr. and Mrs. Thomas Shiftan
Edward and Nancy Sweeney
Clyde and Bonnie Smith
Dr. Philip and Bonnie Stein
Ellen Shiro
Edward Swenson
Courtney Smith
Stephen and Gail Steining
Mr. and Mrs. Edward L.
Shugrue III
Diane Swonk
Ethel and Leonard Smith
Scott Steinman
William and Christine Syers
Ann Shult
James Smith
Gail Stelter
Douglas and Hope Syverson
Rose L. Shure
Kathryn H. Smith
Douglas and Lisa Stern
James and Mary Talmage
David and Carol Sidman
Leon and Elaine Smith
Jonathan and Sydney Stern
Carol and Melvin Taub
Allen and Claudine Siegel
Steven and Georgiann Smith
Sandra and Evan Stern
Mary Elizabeth Taylor
Dr. Sandra and Arthur Siler
Wade Smith
John Stewart
Nathan and May Teitelman
Albert and Martha Sneed
Todd Stewart
James Parkinson Legacy Society
We thank the following
members of the James
Parkinson Legacy Society
who have included PDF in
their estate plans or who
have established a charitable
gift annuity with us.
Gertrude S. Bell
Roger M. Bowman
Ann Cavalli
Aila G. Dawe
Jean Dewdney
Guy Estes
Elizabeth A. Geiser
Matilda Goodman
Annette Korn
Viola B. Marshall
Lisa Painter
Edith Perman-Allen
Marie D. Schwartz
Stephanie and
Bernard Schwartz
Mr. and Mrs. Robert
W. Smith
Charles L. Thomas
Lucy Venable
M. R. Weingardt
James B. Wittrock
If you have made estate plans which include PDF or wish to establish a charitable gift annuity
which provides you with income for life, please contact PDF at (800) 457-6676.
Individuals
Rocky and Cynthia Terrel
Lloyd Vaughan
James M. Weichert
Ray Wirta
Jeff and Rachel Theilacker
Richard N. Vaughan
Mr. George Weiksner
Charles and Meryl Witmer
Josh and Ellen Thomas
Judith Velho Baker
Susan G. Weil
Joel Wojnilower
Ann Thompson
Darla Jean Verdin
Jeffery L. Weiner
Rae Ann Thompson
Dorothy Vetrano
Jon and Jill Weiner
Bill Wolf and
Meredith Bluhm-Wolf
Andrew Weinrich
Ann Wolfe
Albert Weinstein
Mr. and Mrs. Bernard W.
Weiser
Kyle Blackmon (left) and Evan and Sandra
Stern at the 2012 Bal du Printemps
U.T. and Judy Thompson
David and Mary Tidwell
Melvin and Charlotte Timm
Mr. and Mrs. David Timony
John and Patricia Toebe
Maureen Tokar
Mr. and Mrs. David Tolli
Robert and Phyllis Topchik
Mark Topp
Alison Torres
Mr. and Mrs. Dennis Trifletti
Martin and Margaret Tuchman
Andrew McLaughlin and
Anna Vietor
Edward M. Vietor
Catherine Villeminot
Mary Violette
Joseph and Patricia Vitelli
Paul Volcker
Matthew and Sonja Vorwald
Jules and Florine Wachter
Dr. Fred and Mary Woodlief
Marvin Weitz
Dave and Alice Wopat
Don and Evelyn Wells
Gregg Wysocki
Diane Wetterlin
Beverly Yoder
Madelin Wexler
Kathy York
Bruce and Pamela Wexler
Lt. Cmdr. Cassin Young
Nancy Wheeler
Jeanne Young
Robert and Jennifer Wheelock
Pat Younts
William White
James D. Zankel
Robert and Shirley Whiteford
Michael and Rose Zaretsky
Mary Wiebke
Judy Zendell
Sara Wilford
Louis G. Zimmerman
John Wilkins
Cynthia Zirinsky
Kenneth and Kimberly
Williams
Donald and Lynn Zucker
Wendy Williams
John and Karen Winkel
Susan Zwick
Mr. and Ms. Jeff Zygler
Dorothy Winkey
Nicole Winslow
Rich Winter
John Wadsworth
Elliot and Johanna Utrecht
Philip Walker
Louis Vaccaro III
Michael and Gail Walsh
Audrey Warfield
Sandi Wasch
Toshi Watanabe
Gregory and
Lucienne Van Schaack
Elsa Watson
Craig Varrelman
Ralph and Jennifer Watts
Yvonne Vasicek
Larry and Anne Wayne
Marshall Vass
Brad Weddle
25 | Our Donors
Eve Wolff
Dr. James Weiss
Doris C. Wages
Mr. and Mrs. Alan S.
Waldenberg
Mr. and Mrs. Peter Van Nice
Philip Wolfe
Richard and Cheryl Wade
Darla Turlington
Mr. and Mrs. Alexander
Valvezan
Adam and Kim Wolfberg
PDF Champion Brian DeFord and family at
the 2012 Death Valley Hike-A-Thon Event
Our Donors
Estate Gifts
Trust Gifts
Ethel S. Allen
Nurine Hoke
The Balz Trust
Julius Alpert
Bernice H. Jacobsen
Hilda M. Anderson
Ruby Jefferson
Stanley August
Lars and Lena Johansson
Carmen Becker
Bonnie Kaltenborn
Arlene M. Bevilacqua Revocable Gordon McLean Trust
Trust
Richard P. Rost Trust
Adele Blank Charitable Lead
Esther Ruddick Trust
Trust
Lester W. Stevenson, Jr. Trust
Dorothy M. Booth Charitable
Trust
Bernice M. Stiers Trust
Marjorie Maiden Trust
BettyLou Burton Trust
Ruth D'Atri Trust
Thomas F. Tipi Revocable Living
Trust
Rita Muriel Dougherty Trust
Dorothy G. Verhoff Trust
Trust of Edith Eisler
Harold W. Verhoff Trust
Lida Ferguson Testamentary
Trust
Audrey F. Wee Revocable Trust
Gladys Field Charitable Lead
Annuity Trust
Mildred Goldstein Trust
The William White Revocable
Trust
Esther Wright Trust
Edward Wsolak Trust
Annette Goodrich Revocable
Trust
Hudson Charitable Trust
Gladys T. Hyman Trust
Bob Benjamin (second from left) and Light of Day Foundation Board Members at the 2013 Bal du Printemps
Jack M. Berghuis
Natalie B. King
Margery B. Brodsky
Dolly Koler
Gloria Broward
George Kozam
Charles Irwin Trust
Rose A. Kalns Trust
Mary M. Kneibler Living Trust
Trust of Virginia Ladensohn
Hortley G. Leblang Charitable
Trust
Margery D. Bruno
Mary Lee
Leprince Grantors Trust
Dawn C. Bulle
Leila S. Lenagh
Martha Carle
Irene M. Matto
Toni Lieberman Family
Charitable Trust
J. Stuart Cassilly
Appolonia Mayer
Margaret D. Lienemann
Charitable Trust
Lois A. Chazen
Paul Edwin Melcher
Trust of Quirino Lomini
Alvin Colt
Lena Meyers
Carol Crimi
Velma R. Nagel
J. B. Daiches
Doris Helen Plopper
Helen Dalenberg
Frances K. Porter
Catherine T. Davitt
Raymond Radish
Nelson C. Doland, Jr.
John J. Robinson
Lillian Dursht
Angela M. Salatti
Jane C. Fink
Adele Selldorff
Earline Foiles
Rochelle G. Semel
Dinah Friedman
Albina D. Silveri
Charles B. Green
Naomi L. Smith
Sylvia B. Greenberg
Carol A. Spengler
Theodore R. Grimes
Invin L. Steinbach
Howard M. Halpern
John H. Winans
Beatrice S. Harrison
James B. Wozniak
John and Margo Catsimatidis and Rosanna
Scotto at the 2012 Bal du Printemps
Frederick G. Heimberger
We thank our PDF Champions whose efforts from July 1, 2011 to June 30, 2013 helped
us fund promising research and also raised awareness in communities around the US.
Max Adelman
Taking the Plunge Against
Parkinson's
Stephanie Adler
Stacey Catapano
Brooklyn Makeup Studio
Grand Opening and Fundraiser to Benefit Parkinson's
Gary and Beth Ann Chard
Gary's 60th Birthday Party
Carolyn Anderson
Kathleen Andruschat
Pamela Aultman
Alethea Bancale
Niagara Falls International
Marathon 2011
Elizabeth Claps
Marine Corps Marathon 2012
Deirdre M. Cruz
Pennies for Parkinson's
Herbert Dolaway
Theresa Donahoe
David J. Eger, Ph.D.
Music for Parkinson's
Research, 2011 & 2012;
Manhattan Comes to
Mamaroneck
Emily Alice Jewelry
Jewelry Sale for Parkinson’s
John V. Faggione
Lady Warriors vs. Lady
Raiders Softball Game
Sam Falk
Jeni Forshier-Jenkins
Shuffle 'n' Shake
Parkinson's Awareness
Celebration 2012;
Cookie Bake Sale 2013
PDF Champion Jessie Gunter at
the 2012 Marine Corps Marathon
Diane Banks
Sycamore Hills Golf
Fundraiser
David Blomquist
Canoeing for Parkinson's
Laura Blum
Zumba-thon for PD
David Davis
Ride for Parkinson's
Jason Davis
Bill Lowery Memorial Fund
Brian DeFord
DeFord Mountain Hike,
Death Valley Hike-a-Thon
Roger Bonga
Roger's Run Across
Michigan to Fight Parkinson's
Maria L. De Leon, M.D.
Third Annual Parkinson’s
Disease Foundation
Fundraiser
Natasha Brown
In Honor of Dani Rotholz
Cindy DeLuz
Tomee Brown
In Honor of Mike Puzzi
Deana DeModena
In Honor of Grazia Guarino
David and Audra Byer
Jeana DeNardo
Nike Women's Marathon
Don Caruana
In Memory of Donna Caruana
27 | Our Donors
Kate DeWitte
Senior Project on
Parkinson's
Michael Hornung
Splash for a Cause
Raymond Hull
Kingswood Golf Tournament
for Parkinson's
Integrated Care Communities, Inc.
Walk-a-Thon and BBQ
Rachel H. Isenberg
Mt. Kilimanjaro Climb 2011;
Pittsburgh to Philly Bike 2012;
Mt. Whitney Climb for
Parkinson's 2013
Randi S. Jacobs
Becky Jarnagin
In Honor of Mom
Jesus, John, Scott & Michael
Poker for Jesus
Sarah K. Free
Potholders for Parkinson's
Heidi Johnson
Pars Fore Parkinson’s Golf
Tournament
Caley Frunzi
Elizabeth Keshish
Ashley Garrett
Rock 'n' Roll San Diego
Marathon
June Keszeg
In Honor of Tommy McEaddy
Antoinette and Ken Geraci
In Memory of Maria
Paratore
Renee Gillpatrick
Linda Giorgilli Rice
Joseph and Mary Golemme
John Gollisz
James Knowles
New York City Marathon
Tammy Kozumplik
Cut-a-Thon for Parkinson’s
Ivory Latta
1st Annual Ivory Latta
Celebrities for Parkinson's
Bowling Tournament
Alexandria Gorski
Cody Ledsworth
Kayak for Parkinson's
Jessie Gunter
Adrienne Lee
In Memory of Fae Hong Lee
Hillary Hackett
Senior Project, Barry's Fight
for Parkinson's
Kevin Lewis
Bass Fishing PD Tournament
of Champions
Eleanor Hagan
Body in Balance First Annual
Move to Cure Parkinson's
Melanie Lewis
National Technical Honor
Society Beckfield Tri-County
Campus 5k Race for
Parkinson's
Noah Hartsock
Cones for Parkinson's
Linda Heise
Rachel V. Loeser
Bat Mitzvah
Blair Hoffman
The Meadows of Glen Ellyn
Our Donors
Michael Roush
Parkinson's Walk for a
Cure/In Memory of Lloyd
Roush
Danielle Surace
Vincent Fillingeri Memorial
Frank Rumoro
1st Annual "Stepping Out"
Fundraising Walk
Cynthia Taylor
In Memory of George Higgins
Hailey and Taylor Salha
Lemonade Sale
Wendy A. Schreiber
In Memory of Fern Hoover
S. Jane Schrick
Carol S. Schulte
PDF Champions Ambassador Ivory
Latta and her father, Charles Latta
Peggy Sensabaugh
Josh Faircloth Memorial 5k
Run
Carol Tahsuda
Tekk Fusion
Golf for Parkinson's
Bryce Van Dusen
Doris Vasquez
In Honor of Segundo
Vazquez
Sierra Verdin
Pasta for Parkinson's
Jacob Wagner
Waldwick High School
Global Empathy Project
by Students
Lisa Micarelli
In Memory of Frank Micarelli
Jim Patterson
Pints for Parkinsons
Michael Showstead
70th Birthday Party
Parkinson's Support Group
of the Mid-Hudson Valley
Mid-Hudson Valley Walk
Over the Hudson 2012
and 2013
Rita Peters
Oklahoma City Marathon
2012
Scott Shtofman
Ellen Warren
Helping Hand Cuffs
Angela Sipes
Alicia Wasson
Annalise Smith
Big Sur International
Marathon
Matt Welch
Whidbey Island Marathon
Thomas Milana
Margaux Minutolo
Karma for a Cure
Blake Morgan
Blake Morgan Concert
John Morris
Bicycle from Montauk Point
to Niagara Falls
Kimberly Phillippe
Pancakes for Parkinson's
Natalie Piccin
Wedding Donations for
Parkinson's
Pillinger Miller Tarallo, LLP
Debra Pinon
In Honor of Gloria Ruth DiOrio
Tanya Puckett
Albany, Georgia Marathon
2012
Megan Smith
Quidditch for Parkinson's
Linda Spence
Ernie's Favorites
Sports Physical Therapy of
New York
St. Luke’s Center for
Neuroscience Movement
Disorder Center
Polka for Parkinson’s
Evelyn P. Wells
Hands for Heroes
Brittany West
Gillian Woods
Second Annual Stepping Up
the Pace 5k;
Third Annual Stepping Up
the Pace 5k
Alexander Ranieri and
Kristin Mazzone
Long Island Half Marathon
Patricia S. Stearns
Sean Wright
Marine Corps Marathon
2012;
Marine Corps Marathon 10k
2013
Maria Nelson
Joe Rich
AJ Stelacio
Yacso - Meyer
Thomas Nguyen
Norfeldt Elementary School
Molly K. Riddick
Pancakes for Parkinson's
Rob Stevenson
Eric Young
5-Mile Swim for Parkinson's
Thomas Palizzi
Jon Paparsenos
Teresa Riffle
Circleville, OH Walk for a
Cure 2012
Marina Parrish
In Honor of Papaw Clyde
Hardin
Roy Roden
PD Challenge Ride Across
America
Jennifer Neathery
St. Jude Country Music
Marathon 2011;
Nashville
Marathon 2012
Mel Stewart
The Cape Epic Mountain
Bike Race
Pamela Strom
Stand up to Parkinson’s
ZogSports
ZogSports — Play for a Cause
Zwick Pro Am 2011 & 2012
Tracy Stuckey
Foundations/Corporations/Organizations
A&M Label
Biotechnology Industry
Organization
The Betsy and Alan Cohn
Foundation
Community Health Charities
of New England
Bisgeier Family Foundation
Cole Family Fund
BlackRock Kelso Capital
Cole-Crone Family Foundation
of New Mexico
ADM Information Services
The David H. and Mary B. Blair
Charitable Fund
Simon and Eve Colin Foundation
Agarwal Family Foundation
Blaskopf Family Fund
Kenneth Aidekman Family
Foundation
Blue Cross Blue Shield of
Kansas City
The George and Jodie Allen
Charitable Fund
Bonner Family Private Foundation The Color Fund
Columbia University
Booz | Allen | Hamilton
Neurological Institue
Arnold Bortman Family
The
Community Foundation
Foundation
of Western North Carolina
Boucher Charitable Foundation
The John and Patty Brissenden
of Alabama
Fund
Brooklyn Mechanical Corporation of Arizona
of South Carolina
Brown Charitable Foundation
of California
Consumer Electronics Association
of Colorado
Cox Communications
of Florida
Cumberland Community
Foundation
of Georgia
Edna Williams Curl and Myron R.
Curl Endowment for Parkinson's
Abbott Laboratories
Academy 4 Lil' Angels, LLC
Adams and Maland Fund
Allen-Toebe Foundation
Alliance Bernstein
Allstate Giving Campaign
The Allyn Foundation
Altronix
America's Charities
American Physical Therapy
Association
BTIG, LLC
American Society of Appraisers
Bucy Family Fund
AMG Charitable Gift Foundation Burson-Marsteller
Amicus Therapeutics
The Calder-Belsley Family
Foundation
Antz Foundation
of New Jersey
Colliers Bennett & Kahnweiler, Inc. Community Health Charities
of New York
Colligas Family Markets, LP
The Colomby Group
of Oklahoma
of Texas
of Virginia
of Washington & Idaho
Consumer Cellular
CSX Corporation
Archer & Greiner, P.C.
California Community
Foundation
The Arena Energy Foundation
of Illinois
Cushman & Wakefield
Canata Family Foundation
AT&T United Way
CANTEX, Inc.
The Atmos Foundation
of Louisiana and Mississippi
The Dana Foundation
Cantor Fitzgerald Securities
of Michigan
Danem Foundation
of Minnesota
Deloitte & Touche
Avenue Capital Management
The Carefree Foundation
BAE Systems Employee
Community Fund, Inc.
Castle Harlan, Inc.
BAE Systems
Cemex Materials, LLC
The Bane Foundation
Center United Methodist Church
Mitchell and Roslyn Barash
Foundation
Central Texas Ob/Gyn Associates
Barish Family Foundation
Cuzson Associates, LLC
The Darrow Company, Inc.
Diamantine Family Foundation
Linda and Bernard Chalfin
Charitable Fund
Bart & Associates, Inc.
Terry Cheng Gift Fund
Alvin H. Baum Family Fund
Chernega Family Fund
Robert and Lois Baylis Charitable The Cimino Group, Inc.
Gift Fund
Citizens Bank
Beck & Masten Buick-GMC, Inc. Clarus Therapeutics
Patricia and Gardner Bemis
Fund
Clayton Family Charitable Gift
Fund
The Bendheim Foundation
Louis and Virginia Clemente
Foundation
Berdon, LLP
The Berner Charitable and
Scholarship Foundation
Berwind Corporation
29 | Our Donors
Cochran Family Foundation
Scott M. Cohen Memorial
Foundation
PDF Champions Port Jervis Softball Team at the
2013 Lady Warriors vs. Lady Raiders Softball Game
Our Donors
Gemtron Corporation
General Electric Company
The Gerald and Deanne Gitner
Charitable Fund
Give with Liberty
Ruth and Jack Glantz Family
Foundation
The Dinan Family Foundation
Direct Marketing Solutions
Essex Plaza Management
Associates
Evergreen Management
Barbara and Michael Ditzian
Charitable Fund
ExxonMobil Foundation
Eamonn and Kathleen Dolan
Charitable Fund
Fairchild Martindale Foundation
Don Ayres Honda
Farrell Fritz, P.C.
Arthur and Eve Fastenberg
The Dopkin-Singer-Dannenberg
Philanthropic Fund
Foundation
First Baptist Church of Ellenwood
Anne and Gerald Down
First Fruit Charity Trust Fund
Charitable Fund
FirstGiving
Dreiseszun Family Foundation
Drug Information Association
The Floors For Cures Foundation
DuBose Family Foundation
Forest Family Foundation
Eagel Sports Promotions, Inc.
Fr. Maurice J. Wolfe Council,
Knights of Columbus
Leona M. and Harry B. Helmsley
Foundation
Helping Hand Foundation
The Heming Foundation
Herndon Foundation
GlaxoSmithKline Foundation
HighVista Strategies, LLC
Glickenhaus Foundation
Philip M. Hogan Family Fund
The GMK Family Fund
Margot and Stephen Holland
Charitable Fund
Ron and Judy Gold Family Fund
Missy Egbert Sheehan and G. Pennington Egbert III
with their mother, Mrs. George P. Egbert, Jr.
(center) at the 2012 Celebrate Spring
Hawaii Permanente Medical
Group, Inc.
Joseph H. Goldberg Family
Foundation
Homestead Foundation
The Huggins Family Charitable
Foundation
Edward and Marjorie Goldberger
Foundation
Sheila and Milton Hyman
Foundation
The Sarah and James Goldman
Charitable Fund
Inserra Supermarkets, Inc.
Sol Goldman Charitable Trust
IPACT, Inc.
Goldman Sonnenfeldt
Foundation
Isermann Family Foundation
Jerome and Molly Goldstein
Philanthropic Fund
Google
Jaclyn, Inc.
The Anna and Alexander Jacobs
Charitable Fund
Gorlitz Foundation, LTD
Alan L. and Barbara S. Jacobs
Philanthropic Fund
Gottwald Foundation
Jacoby Family Fund
Grand Council Cryptic Masons
J&K Ingredients, Inc.
Grand Lodge Benevolent,
Patriotic Order of Does
Jerome Haims Realty, Inc.
Eugene and Emily Grant
Foundation
Greco Traficante Schulz & Brick
Alan C. Greenberg Philanthropic
Fund
Jewish Community Endowment
Fund
JMC Search, LLC
Johnson & Johnson Family of
Companies
Early, Lucarelli, Sweeney &
Strauss
The Connie Frank Foundation
Easter Foundation
Frankfurt Kurnit Klein & Selz, P.C. Greenberger Family Fund
The Echlin Foundation
Daniel and Harriett Freed
Foundation
The Jack Webster Grigsby
Foundation
The Freidman Family Fund
Gristedes
The Fremont Foundation
Gulf Parkinson's Source
Dr. Rudolph and Mildred Joseph
Foundation
El Paso Corporation
Eli Lilly and Company
Foundation
Thad and Suzanne Johnson
Charitable Fund
Mary F. Johnson Fund
The Jordan Family Foundation
Elias Charitable Foundation
Friedman, LLP
Gutterman Foundation
Joseph Rosen Foundation
Elma Eagle Riders
The Gabel Foundation
JP Maguire Associates
Emily Alice Jewellery
Gabelli & Company, Inc.
The Gwendolyn HalseyAlbertson Foundation
Empire Blue Cross Blue Shield
Gallagher-Kaiser Corporation
Encana Oil & Gas (USA), Inc.
The Cynthia F. and John F.
Gallagher, III Charitable Fund
EP Energy
Epic Systems Corporation
Ernst Foundation
The Gambrell Family Foundation
Gap, Inc.
GE Foundation
Hang It Up Corporation
Harrah's North Kansas City, LLC
Harriet Ford Dickenson
Foundation
Just Give
The Kandell Fund
Jerome A. Kaplan and Deena
L. Kaplan Family Foundation
George W. Harris Foundation
The Marcia and Ned Kaplin
Foundation
The Harte Auto Group
Robert and Florence Kaufman
Foundation
Foundations/Corporations/Organizations
Henry and Elaine Kaufman
Foundation
Kelly Family Foundation
M&A Rubinfeld Family Fund
MAERSK, Inc.
Northwoods League
Foundation
The Mahoney Donor Fund
NYC Human Resources
Administration
Kesselhaut Family Foundation
The Jamie and Paige Malone
Foundation
Thomas P. and Patricia A.
O'Donnell Foundation
Kidderbrook Foundation
Mana Products, Inc.
The Richard E. and Marianne B.
Kipper Foundation
Management Planning, Inc.
The Calvin and Flavia Oak
Foundation
Sam W. Klein Charitable
Foundation
Kohl's
Office Automation System
Massimo Zanetti Beverage USA, Ogden Cap Properties, LLC
Inc.
OH Local
The Noreene Storrie and Wesley
G. McCain Family Fund
On The Ave
The Kortschak Family
Foundation
John L. and Helen B. McGrath
Fund
The Kosher Nosh
KTR Capital Partners, LP
Howard and Gail Kunreuther
Charitable Fund
Kelly Refrigeration & Freezer, Inc.
Worth Knight and Kimberly
Knight Charitable Fund
Mar-Ber Development
Corporation
The Portmann Family Charitable
Fund
Premiere Paddle Surf
The David C. and Jeannie Price
Fund
Prince Charitable Trusts
Propeller Club Sport
Organization
Prudential Financial
The McGraw-Hill Companies
P. E. C. United Charities, Inc.
Puddy Family Fund
McIrvin Brothers, Inc.
P. M. Lecomte Fund
PY vs. PD Foundation
McKesson Foundation
Regina Pargament Trust Fund
Qualcomm
Parkinson's Unity Walk
R & R Endowment Fund
Hyman and Bessie Passman
Family Charitable Foundation
R. C. Bigelow, Inc.
Microsoft Giving Campaign
Leesfield Family Foundation
Legatus Foundation
The Millison Foundation
Mirken Foundation
PATCO Construction
Patton Holdings, Inc.
Peaceful Meadows Farms Ice
Cream
Pearson Education
Redding Golf Shop
Kristin and Michael Reed Family
Foundation
Amy and Joe Perella Charitable
Fund
The Kurt Reinsberg
Philanthropic Fund
Ralph Reis Family Fund
The Ilan M. and Barbara G. Levi
Fund
Nanell Foundation
Lewis, Rice & Fingersh, L.C.
Pfizer, Inc. - Neuroscience
Research Unit
National Notary Foundation
The Phillies
Anita and Stanley Liebowitz Fund NCREIF
Red Apple Group
The Donald Reich Family
Charitable Fund
Lettuce Entertain You
Morton Capital Management
Ralph J. Duffie, Inc.
Pella Windows and Doors
Howard and Virginia Morgan
Fund
William and Nancy Lifland Fund
James and Sandra Porter
Charitable Fund
Public Financial Management
Group
Midstate Radiology Associates,
LLC
The Eileen and Peter Lehrer
Family Foundation
Port Jervis Public Schools
Richard and Harriet Orkand
Charitable Fund
Medtronic, Inc.
Seryl and Charles Kushner Family
The Elena Melius Foundation
Foundation
Merck
Partnership For Giving
Law Office of Howard F. Angione
Lawrence Livermore National
Laboratory
The Oak Hill Charitable Fund
Pillinger Miller Tarallo, LLP
Richard and Gail Ullman
Charitable Fund
The Netter Foundation
Light of Day Foundation
Network Consulting, Inc.
Linhart Family Philanthropic Fund New Dramatists
Linsone, Inc.
New York Life Insurance
Company
The Lisette Model Foundation
Litterman Family Foundation
New York Yankees Foundation
The Little Family Fund
Newport News Ship Building
Loeb & Loeb, LLP
Robert and Kate Niehaus
Foundation
Jane P. Long Fund of NY
Community Trust
Sally Nightingale Charitable
Fund
Loureiro Engineering Associates,
Northern Trust Company
Inc.
Northrop
Grumman
Lovinger Family Foundation
Corporation
Lower Shore Parkinson's
Support Group
31 | Our Donors
PDF Champion Jennifer Neathery and husband
at the 2013 Ran Grand Canyon Rim to Rim Event
Our Donors
Southwest Contractors
United Refining Company
SPA Products Import &
Distribution Co., LLC
United Technologies
The Spurlino Foundation
St. Irene's Philoptochos Society
St. Luke’s University Hospital
and Health Network
Fred and Mary Stahmann
Family Fund of the SFACF
Frank and Domna Stanton
Foundation
James and Janice Stanton
Foundation
PDF Champion Stacey Catapano at the
2012 Brooklyn Make Up Studio Event
The Richard Foundation
Rios of Mercedes
Toby and Nataly Ritter Family
Foundation
Eli and Mae Rosen Foundation
Joseph Rosen Foundation
United Way of Rhode Island
United Way Of The Greater
Lehigh Valley
United Way
The V & L Marx Foundation
The Van Nice Foundation
Vanguard Charitable Endowment
Program
The Starr Foundation
The Vermont Community
Foundation
Starrett City, Inc.
Veson Nautical Corporation
The Dorothy Strelsin Foundation Victory Park Securities
Visa Givingstation
Sullivan Solar Power
Schwab Charitable Fund
Arnold and Marie Schwartz Fund Suplove, Inc.
The Sutton Family Charitable
Phyllis and Howard Schwartz
Fund
Philanthropic Fund
Scievelbein Family Foundation
Trust
United Way of Central Indiana
Visiting Nurse Service of New York
The Walt Disney Company
Foundation
SVM Foundation
The Wasily Family Foundation
Syde Hurdus Foundation
Waste Management South
Atlantic Area
Secure Real Estate Management, Alexandra and Martin Symonds
Rosie's Charitable Fund
L.P.
Foundation
The Irene Herbert Ross and
Semmes
Henry
and Marilyn Taub
Harper Grant Ross Foundation
Foundation
The Shafir Family Fund
The Ross-Kolmerten Fund
Judy and Warren Tenney
The Ron Shapiro Charitable
Foundation
The Miriam and Samuel Rotrosen Foundation
Charitable Fund
The David Tepper Charitable
Shapiro Family Foundation
Foundation
Royal Neighbors of America
Shepaug Valley Regional High
Teva
Neuroscience, Inc.
Lawrence Ruben Foundation
School
Theresa
Fatato Foundation
The Martha and Max Rubinstein The Shubert Organization, Inc.
Family Foundation
Ellen and Josh Thomas Fund
Fred Siegel Foundation
RZR Realty Management
Thomas
Neal Foundation
Company, LLC
Siegel, O'Connor, O'Donnell &
Beck, P. C.
Three Swallows Foundation
S & D Contractors, Inc.
The Oscar and Edith Simon
Timber Creek Capital
S & S Roofing
Foundation
Management, LLC
SAD Foundation
Singers for Enjoyment
TJM Investments, LLC
The Safer-Fearer Fund
Samuel and Beverly Sirota Family TLR Fund
Philanthropic Fund
Edmond J. Safra Foundation
The Trukenbrod Family
Skadden,
Arps, Slate, Meagher
Foundation
Sanford C. Bernstein &
&
Flom,
LLP
Company, LLC
The Tuchman Foundation
The Herbert and Arline Slepoy
Sanky Communications, Inc.
Charitable Fund
Turnaround Management
Association
Charles and Mildred
Smith
Barney
(Citi)
Global
Schnurmacher Foundation
Impact Funding Trust, Inc.
Tyco Electronics
The Jean and Thomas Schreiber The Lee and Perry Smith Fund
U.M.R. Foundation
Philanthropic Fund
Smith
Haven
Ministries,
Inc.
UCB, Inc.
The Schrum Family Fund of
Triangle Community
The Solomon Organization
UHY Advisors NY, Inc.
Foundation
Wechsler Foundation
J. Weinstein Foundation
Wellpoint Associate Giving
Campaign
Wells Fargo Bank, N.A.
Wells Fargo Community Support
Campaign
West Fuels, Inc.
WESTAT
The Kirk and Elizabeth Wheeler
Fund
The Windbrook Fund
Yorkshire Food Sales
Corporation
Peggy and Adam Young
Charitable Foundation
Ziff Brothers Investments, LLC
Mary and George Herbert
Zimmerman Foundation
Zoe's Best Friend, Inc.
In 2012 and 2013, PDF awarded almost $10 million for Parkinson’s research. These 80 awards were chosen by members of our Scientific Advisory Board, joined by PDF Research Advocates. We thank the
following grant recipients for their commitment to improving the lives and
futures of people touched by Parkinson’s.
Research Centers | $5.34 Million
Allow talented scientists the flexibility and long-term support to collaborate on basic, translational and
clinical research.
Un Jung Kang, M.D., Principal
Investigator
Roy N. Alcalay, M.D., M.Sc.
Robert E. Burke, M.D.
Lorraine N. Clark, Ph.D.
Stanley Fahn, M.D.
Blair Ford, M.D.
Jill S. Goldman, M.S., M.Phil.
Lloyd A. Greene, Ph.D.
Paul E. Greene, M.D.
Sheng-Han Kuo, M.D., Ph.D.
Elan D. Louis, M.D., M.Sc.
Karen Marder, M.D., M.P.H.
Pietro Mazzoni, M.D., Ph.D.
Eugene Mosharov, Ph.D.
Serge Przedborski, M.D., Ph.D.
Rush University Medical Center
Christopher G. Goetz, M.D., Principal
Investigator
Brandon R. Barton, M.D., M.S.
Bryan A. Bernard, Ph.D.
Cynthia L. Comella, M.D.
Jennifer G. Goldman, M.D., M.S.
Deborah A. Hall, M.D., Ph.D.
Seth L. Pullman, M.D., F.R.C.P.C.
Yaakov Stern, Ph.D.
David Sulzer, Ph.D.
Jean Paul G. Vonsattel, M.D.
Cheryl H. Waters, M.D., F.R.C.P.C.
Ai Yamamoto, Ph.D.
Weill Cornell Medical Center
Katie Kompoliti, M.D.
Jeffrey H. Kordower, Ph.D.
Leo Verhagen-Metman, M.D., Ph.D.
T. Celeste Napier, Ph.D.
Kalipada Pahan, Ph.D.
Kathleen M. Shannon, M.D.
Glenn T. Stebbins, Ph.D.
M. Flint Beal, M.D., Co-Principal
Investigator
Claire Henchcliffe, M.D., D.Phil.,
Co-Principal Investigator
Chaorui Huang M.D., Ph.D.
Alexander Shtilbans, M.D., Ph.D.
International Research Grants | $1.48 Million
Promote innovative research projects that have high potential to significantly advance the knowledge
of Parkinson’s.
Epigenetic Dysregulation in Levodopa-Induced Dyskinesia
David Anderson, Ph.D., and Jay
Schneider, Ph.D., Thomas Jefferson
University
Stability of Tetrameric Alpha-synuclein
as a Biomarker in Parkinson’s Disease*
Tim Bartels, M.Sc., Ph.D., and Dennis
J. Selkoe, M.D., Harvard Medical
School and Brigham and Women’s
Hospital
Evaluating the Role of Mitochondrial
Dynamics in Parkinson's Disease in an
in Vivo Vertebrate Model: Real-Time
Live Imaging of Mitochondrial Dynamics in Dopamine Neurons in
Whole Zebrafish*
Sarah B. Berman, Ph.D., M.D., and
Edward Burton M.D., D.Phil., F.R.C.P.,
University of Pittsburgh
*Denotes second year of funding
33 | Our Researchers
Our Researchers
Impact of Low- and High-Frequency Electrical Stimulation
on the Inputs, Integrative Properties and Output of
the Subthalamic Nucleus*
Mark D. Bevan, Ph.D., Northwestern University
Interaction of LRRK2 and Tau in Mediating Neurodegeneration in Mouse Models of Parkinson's Disease
Darren Moore, Ph.D., Swiss Federal Institute of Technology in Lausanne (EPFL), Switzerland
Elucidation of the Role of Cholinergic Interneurons in
Levo-dopa-Induced Dyskinesias
Tomas Björklund, Ph.D., Lund University, Sweden
Identifying Connectivity Changes with Deep Brain Stimulation in Parkinson’s Disease
Matthias Schröeter, M.D., Ph.D., and Karsten Müller,
Ph.D., Max Planck Institute for Human Cognitive and
Brain Sciences, Germany
Dissecting the Different Properties of Human Alphasynuclein Between Dopamine and Non-Dopamine Neurons
in Vivo*
Linan Chen, M.D., Ph.D., and Xiaoxi Zhuang, Ph.D., University of Chicago
Cellular Mechanisms of Semaphorin 3E-Plexin-D1 Signaling in Basal Ganglia Circuitry Formation and Neurodegenerative Diseases*
Chenghua Gu, D.V.M., Ph.D., Harvard Medical School
Identification and Characterization of a Novel Gene for
Parkinsonism*
Paul Lockhart, Ph.D., and Gabrielle Wilson, Ph.D., Bruce
Lefroy Centre, Murdoch Childrens Research Institute,
Royal Children's Hospital, Australia
Small Aromatic Molecules as Novel Inhibitors of Alphasynuclein Aggregation*
Daniel Segal, Ph.D., Tel Aviv University, Israel
Imaging Impulsive Control Disorders in Parkinson’s
Antonio Strafella, M.D., Ph.D., Toronto Western Hospital,
Canada
Cyclic GMP Signaling and Experimental Parkinsonism*
Anthony R. West, Ph.D., and Kuei-Yuan Tseng, M.D.,
Ph.D., Rosalind Franklin University
Identification of Genes for Parkinson's in an Isolated Greek
Community and a Greek Population Cohort*
Georgia Xiromerisiou, Ph.D., M.D., University of Thessaly,
Greece, and Henry Houlden, M.D., M.R.C.P., Ph.D., University College, London, England
Fellowship and Career Development Awards | $2.23 Million
Prepare leaders in Parkinson’s research and clinical practice.
Research Fellowship Projects | $380,000
Regulation of Alpha-synuclein mRNA Translation in
SNCA Expressing Neurons
Ianai Fishbein, Ph.D., Institute for Human Genetics, University of California, San Francisco
Role of Parkin in the Clearance of Defective Mitochondria with Deleted mtDNA: A New Mouse Model of
Parkinson's Disease
Milena Pinto, Ph.D., University of Miami
Optogenetic Characterization of the Pallidostriatal
Synapse in Parkinsonian Mice
Kelly Glajch, Ph.D., Northwestern University
Clearing Defective Mitochondria: How is Parkin Recruited and Activated?
Evgeny Shlevkov, Ph.D., Children's Hospital Boston
Characterization of a Novel Component That Functions
Upstream of PINK1 Linking Mitochondrial Unfolded Protein Stress to Mitophagy
Yi-Fan Lin, Ph.D., Sloan-Kettering Institute
The Role of Parkin in Regulating Mitochondrial Dynamics
and Homeostasis in Cortical and Dopaminergic Neurons*
Victor Van Laar, Ph.D., University of Pittsburgh
Dopaminergic Neuron Subtype Differences in OXPHOS
Capacity and Mitophagy in Response to mtDNA Damage
Alicia Pickrell, Ph.D., Division of Intramural Research,
National Institute of Neurological Disorders and Stroke
(NINDS)
Locus Coeruleus as a Substrate for Parkinsonian Cognitive Inflexibility*
Elena Vazey, Ph.D., Medical University of South Carolina
Fellowship and Career Development Awards (Cont’d.)
Clinical Training Fellowships | $1.54 million
David Arkadir, M.D., Ph.D.
Christopher W. Hess, M.D.
Meir Kestenbaum, M.D.
Ruben Martinez, M.D.
Daphne Robakis, M.D.
David Rydz, M.D.
Hiral Shah, M.D.
Madeline Sharp, M.D.
Sirinan Tazen, M.D.
Tuhin Virmani, M.D., Ph.D.
Brenton Wright, M.D.
Rush University Medical Center
Sheila Eichenscer, M.D.
Houman Homayoun, M.D.
Gian Dev Pal, M.D.
Padmaja Vittal, M.D.
Summer Student Fellowship Projects | $105,000
LRRK2-dependent Olfactory Deficits in Mice
Rachel Bailey, mentor Jada Lewis, Ph.D., University of
Florida
Towards Elucidating the Structural Details of Alpha-synuclein in Parkinson’s Disease: Development and Application of Double-Labeled Alpha-synuclein
Solongo Batjargal, mentor E. James Petersson, Ph.D.,
University of Pennsylvania
Small Molecule Modulation of the Unfolded Protein Response as a Novel Therapeutic Avenue in the Treatment
of Parkinson's Disease
Joel Credle, mentor Anita Sidhu, Ph.D., Georgetown
University
Mechanistic Investigation of Alpha-synuclein- Mediated
Microglial Activation in PD
Connor Davenport, mentor Kathleen Maguire-Zeiss,
Ph.D., Georgetown University
Effects of Training on Learning and Retention of Tool-Related Skilled Action in Parkinson's Disease
Holly Fernandes, mentor Norman Park, Ph.D., York University, Canada
CD200/CD200R-mediated Neuroinflammation in Parkinsonism
Collin Flanagan, mentor J. Timothy Greenamyre, M.D.,
Ph.D., University of Pittsburgh School of Medicine
A Novel Evaluation of Daytime Vigilance in Individuals
with Parkinson's Disease Using a Virtual Reality Street
Crossing Task
Kristin Ford, mentor Amy Amara, M.D., Ph.D., University of Alabama at Birmingham
Comparative Effectiveness Study to Evaluate In-Home
Telemedicine as a Means to Increase Access to Sub-specialty Care for Individuals with Parkinson's Disease
Benjamin George, mentor E. Ray Dorsey, M.D., M.B.A.,
Johns Hopkins University
Investigating the Role of Enzyme-Mediated Neuronal
Protection in Parkinson's Disease
William Johnson, mentor Amy Wilson-Delfosse, Ph.D.,
Case Western Reserve University
Effect of p11 Inhibition on D1 and D2 Dopamine Receptors Activity
Darya Khazanova, mentor Michael G. Kaplitt, Ph.D.,
M.D., Weill Cornell Medical College
Dopamine Receptor Expression and Function in the External Globus Pallidus
David Klein, mentor C. Savio Chan, Ph.D., Northwestern University
Evaluation of Splice and C-terminal Truncation Variants
of Alpha-synuclein in Yeast Models
Natalie Kukulka, mentor Shubhik DebBurman, Ph.D.,
Lake Forest College
Our Researchers
Study of the Roles and Mechanisms of PINK1 and Parkin
in Mitophagy
Paul Lebot, mentor Serge Przedborski, M.D., Ph.D., Columbia University Medical Center
Dissecting the Role of c-Abl in Parkinson's
Andi Shahu, mentor Ted Dawson, M.D., Ph.D., Johns
Hopkins University School of Medicine Neuropsychological Predictors of Disease
The Molecular Interaction of Non-catechol Drugs with
Dopamine D1 Receptors: Towards Improved Therapy for
Parkinson’s Disease
Sang Min Lee, mentor Richard Mailman, Ph.D., The
Pennsylvania State University College of Medicine
Progression in Early Onset Parkinson’s Disease
Megha Subramanian, mentor Paul J. Eslinger, Ph.D.,
The Pennsylvania State University College of Medicine
Effects of Alpha-synuclein Immunotherapy in a Mouse
Model of Parkinson's Disease
Eric Lin, mentor Virginia M.-Y. Lee, Ph.D., Perelman
School of Medicine at the University of Pennsylvania
The Effect of Unilateral vs. Bilateral Deep Brain Stimulation of the Subthalamic Nucleus on Memory-Guided Sequential Pointing
Ruth Tangonan, mentor Daniel Corcos, Ph.D., University
of Illinois at Chicago
Using Drosophila to Investigate the Synaptic Effects of
Ziram, a Parkinson’s Disease-Linked Pesticide
Ciara Martin, mentor David Krantz, M.D., Ph.D., University of California, Los Angeles
Comparison of a Bimanual and Unimanual Finger Tapping Test for Detection of Upper-Limb Movement Variability and Freezing Episodes in Parkinson's
Megan Trager, mentor Helen Bronte-Stewart, M.D.,
M.S.E., Stanford University
Interactions Between Tyrosine Hydroxylase and 14-3-3
Protein
Ewa Nowara, mentor S. Colette Daubner, Ph.D., University of Texas Health Science Center at San Antonio
The Characterization of Autophagy in MPP+-induced
Dopaminergic Cells
Eric Tsai, mentor Karen O'Malley, Ph.D., Washington
University School of Medicine in St. Louis
Rescue of Tyrosine Hydroxylase by Soluble GFR Alpha-1
in 6-OHDA Parkinson’s Model
Catherine Owens, mentor Michael Salvatore, Ph.D.,
Louisiana State University Health Sciences Center
Shreveport
Molecular Mechanisms by Which Excess Synuclein Impairs Synapse Function: Implications for Parkinson’s
Alexandra van Brummen, mentor Jennifer Morgan,
Ph.D., The University of Texas at Austin
Mild Cognitive Impairment and Health-Related Quality
of Life in Non-demented Parkinson's Disease Patients
William Reginold, mentor Connie Marras, M.D., Ph.D.,
Toronto Western Hospital
Comparing Diagnostic Criteria of Mild Cognitive Impairment over Three Year Follow-up in People with Parkinson’s Disease without Dementia
William Reginold, mentor Connie Marras, M.D., Ph.D.,
Toronto Western Hospital
The Utilization of Mobile Technology for the Optimization of Deep Brain Stimulation Parameters for the Treatment of Postural Stability
Sarah Richardson, mentor Jay Alberts, Ph.D., Cleveland
Clinic
Phenotype-Specific Cell Loss in the Human Olfactory
Bulb Associated with Parkinson’s Disease
Ava Weibman, mentor John Cave, Ph.D., Burke Medical
Research Institute
Protection of Dissociated Rat Substantia Nigra Cultures
from MPP+ Toxicity by a Combination of Neurotrophic
Factors
Stephanie Wyrostek, mentor Michael J. Zigmond,
Ph.D., University of Pittsburgh
Evaluation of Peripheral Olfactory Adaptation as a Potential Biomarker for Parkinson’s Disease
Wendy Yoder, mentor David Smith, Ph.D., University of
Florida
Fellowship and Career Development Awards (Cont’d.)
Collaborative Fellowships | $205,000
PDF-ABF Clinician-Scientist Development Award |
$105,000
(Co-sponsored by American Brain Foundation)
Mechanisms of Cell Type-Specific Vulnerability in Synucleinopathy: A Yeast Stem Cell Dual Discovery Platform*
Vikram Khurana, M.D., Ph.D., Massachusetts General
Hospital
PDF-PSG Mentored Clinical Research Award | $100,000
(Funded by a grant from PDF to the Parkinson Study
Group)
Neurophysiology Adaptations to Tango Dancing in Individuals with Parkinson's Disease
Kristen Pickett, Ph.D., mentors Gammon M. Earhart,
P.T., Ph.D., and Joel Perlmutter, M.D., Washington University School of Medicine in St. Louis
Behavioral Treatment for Anxiety in PD
Jessica Caileo, Ph. D., mentors Laura Marsh, M.D., and
Melissa Shanley, Ph.D.
Advancing Parkinson's Treatments Grants | $376,500
Facilitate the movement of treatments from bench to bedside.
Innovations Awards | $300,000
Training of New Parkinson’s Clinical Research Investigators through the PSG Annual Meeting
Parkinson Study Group
Datamining to Better Understand Parkinson’s Disease
Progression, Treatment Response, Complications and
Outcomes
Parkinson Study Group
Conference Awards | $76,500
West Coast Conference: Determining Factors in PD Progression Rate
Marie-Françoise Chesselet, M.D., Ph.D., University of
California, Los Angeles
International Symposium on Falls in PD
Leland Dibble, P.T., Ph.D., University of Utah, Gammon
M. Earhart, P.T., Ph.D., Washington University School of
Medicine, Colleen Canning, Ph.D., University of Sydney,
Theresa Ellis, P.T., Ph.D., Boston University
Cognitive Assessment for Parkinson's Disease in MultiCultural/ Linguistic Populations
Ignacio F. Mata, Ph.D., James. B. Leverenz, M.D., G.
Stennis Watson, Ph.D., and Cyrus P. Zabetian, M.D.,
M.S., University of Washington
Evaluating the Effectiveness of a Novel Patient Workshop/ Symposium in Parkinson’s Disease
Lisa M. Shulman, M.D., University of Maryland School of
Medicine
Impulse Control Disorders in Parkinson’s
Antonio Strafella, M.D., Ph.D., F.R.C.P.C., University of
Toronto, and Mark A. Stacy, M.D., Duke University
Our Researchers
Côté Clinical Genetics Initiative | $440,000
Identify and understand the role of genetic markers in Parkinson’s.
Parkinson Disease in a Minority Inner City Population: Clinical Phenotypes and Genetic Etiologies, Focus on AfroCaribbean Populations
Jose C. Cabassa, M.D., mentor Rachel Saunders-Pullman,
M.D., M.P.H., SUNY Downstate Medical Center and Beth
Israel Medical Center, Einstein College of Medicine
Implications of Antigen Presentation by Dopaminergic
Neurons in an AAV2-synuclein Mouse Model of Parkinson's Disease
Carolina Cebrián, Ph.D., mentor David Sulzer, Ph.D., Columbia University Medical Center
Amperometric Measurement of Quantal Dopamine Release from Primary Mouse Neurons and Human Induced
Pluripotent Stem Cells (iPSCs)
Se Joon Choi, Ph.D., mentor Eugene Mosharov, Ph.D.,
Mutant Glucocerebrosidase Causes Dysfunctional Chaperone-mediated Autophagy and Alpha-synuclein Accumulation in Patient Fibroblast-derived Dopaminergic Neurons
Sheng-Han Kuo, M.D., Ph.D., mentor David Sulzer, Ph.D.,
Molecular Characterization of MAPT Haplotypes in Parkinson’s Disease
Oren Levy, M.D., Ph.D., mentor Lloyd A. Greene, Ph.D.,
Identifying Genetic Causes Underlying Early-onset Parkinson’s Disease
Coro Paisán-Ruiz, Ph.D., mentor Joseph D. Buxbaum,
Ph.D., Mount Sinai School of Medicine
Localization of Alpha-synuclein in Mitochondrial-associated ER Membranes (MAM): A New Insight into the Pathogenesis of PD (competively renewed in 2013)
Cristina Guardia-Laguarta, Ph.D., mentor Serge Przedborski, M.D., Ph.D., Columbia University Medical Center
In fiscal years 2012 and 2013, PDF was awarded both a four-star
rating from Charity Navigator (the highest) and the Charity Seal of
Approval from the Wise Giving Alliance of the Better Business Bureau (BBB).
Balance Sheet
June 30
2013
2012
2011
Cash and cash equivalents
$933,498
$385,179
$779,578
Contributions and other receivables
1,630,844
393,774
550,651
90,094
87,006
74,161
8,862,184
10,468,207
12,446,070
Fixed assets, net of accumulated depreciation
99,119
157,516
235,521
Other noncurrent assets
56,540
56,540
56,540
186,371
189,676
210,723
$11,858,650
$11,737,898
$14,353,244
Accounts payable and accrued expenses
$558,129
$663,943
$766,321
Grants payable
1,721,567
1,602,592
1,327,440
186,371
189,676
210,723
2,466,067
2,456,211
2,304,483
Unrestricted
6,033,208
5,886,973
8,608,353
Restricted
3,359,375
3,394,714
3,440,408
Total net assets
9,392,583
9,281,687
12,048,761
$11,858,650
$11,737,898
$14,353,244
Assets
Other current assets
Investments, at fair value
Investments — restricted as to use
Total assets
Liabilities and net assets
Deferred compensation plan
Total liabilities
Net assets
Total liabilities and net assets
39 | Financial Reports
Financial Reports
Statement of Activities
Unrestricted Restricted
Year ended
June 30, 2011
Year ended
June 30, 2012
Year ended
June 30, 2013
Unrestricted
Total
Restricted
Total
Unrestricted
Restricted
Total
Operating support
and revenue:
Contributions
Bequests
Special events revenue, net
Investment income
In-Kind donation
Net assets released
from restrictions
Total operating support
and revenue
Operating expenses:
Program services:
Research
Public information/patient
information and referral
services
Total program services
Supporting services:
Management and general
Fundraising
Total supporting services
Total operating expenses
Change in net assets
Net assets, beginning of year
Net assets, end of year
$4,299,967
-
$4,299,967
$4,752,851
-
$4,752,851
$4,022,882
$172,277
$4,195,159
4,538,625
14,661
4,553,286
2,150,721
4,306
2,155,027
2,398,320
2,366,462
4,764,782
298,105
-
298,105
238,541
-
238,541
348,050
-
348,050
723,742
-
723,742
(15,926)
-
(15,926)
976,398
-
976,398
226,548
-
226,548
154,234
-
154,234
-
-
-
50,000
(50,000)
-
50,000
(50,000)
-
833,314
(833,314)
-
10,136,987
(35,339)
10,101,648
7,330,421
(45,694)
7,284,727
8,578,964
1,705,425
10,284,389
5,934,056
-
5,934,056
6,084,574
-
6,084,574
5,671,135
-
5,671,135
1,997,921
-
1,997,921
2,045,879
-
2,045,879
1,990,591
-
1,990,591
7,931,977
8,130,453
8,130,453
7,661,726
7,931,977
7,661,726
598,136
-
598,136
570,880
-
570,880
586,536
-
586,536
1,460,640
-
1,460,640
1,350,467
-
1,350,467
1,269,557
-
1,269,557
2,058,776
-
2,058,776
1,921,347
-
1,921,347
1,856,093
-
1,856,093
9,990,753
-
9,990,753
10,051,800
-
10,051,800
9,517,819
-
9,517,819
146,234
(35,339)
110,895
(2,721,379)
(45,694)
(2,767,073)
(938,855)
1,705,425
766,570
5,886,974
3,394,714
9,281,688
8,608,353
3,440,408
12,048,761
9,547,208
1,734,983
11,282,191
$6,033,208
$3,359,375
$9,392,583
$5,886,974
$3,394,714
$9,281,688
$8,608,353
$3,440,408
$12,048,761
Advocacy
5%
Education 15%
Administration
& Fundraising 20%
Research 60%
2013
Our People
Board of Directors
Scientific Advisory Board
Officers
Stanley Fahn, M.D., Chair
Constance W. Atwell, Ph.D.
M. Flint Beal, M.D.
Robert Burke, M.D.
Cynthia L. Comella, M.D.
David Eidelberg, M.D.
Christopher Goetz, M.D.
Lloyd Greene, Ph.D.
J. Timothy Greenamyre, M.D., Ph.D.
Danna Jennings, M.D.
Katie Kompoliti, M.D.
Jeffrey H. Kordower, Ph.D.
J. William Langston, M.D.
Karen Marder, M.D., M.P.H
Serge Przedborski, M.D., Ph.D.
Kathleen Shannon, M.D.
Yaakov Stern, Ph.D.
David Sulzer, Ph.D.
G. Frederick Wooten, M.D.
Anne B. Young, M.D., Ph.D.
Howard D. Morgan
Chair
Constance W. Atwell, Ph.D.
Vice Chair
Stephen Ackerman
Treasurer
Isobel Robins Konecky
Secretary
Stanley Fahn, M.D.
Scientific Director
Directors
Karen Elizabeth Burke, M.D., Ph.D.
Margo Catsimatidis
Peter Dorn
George Pennington Egbert III
Richard D. Field
Sarah Belk Gambrell
Stephanie Goldman-Pittel
Arlene Levine
Marshall Loeb
Thomas A. Palizzi
Timothy A. Pedley, M.D.
Gregory Romero
Lewis P. Rowland, M.D., President Emeritus
Marie D. Schwartz
Domna Stanton, Ph.D.
Melvin S. Taub
Martin Tuchman
Founding Chairs
William Black
Page Morton Black
President
Robin Anthony Elliott
41 | Our People
People with Parkinson's
Advisory Council
Thomas A. Palizzi, Chair
Fred Woodlief, D.D.S., Vice Chair
Claire Berman
Christine Colón, M.S.
Diane Cook
Maria De Leon, M.D.
Steve DeWitte
Hao Dong, Ph.D.
Eric Hellinger
Nan Little, Ph.D.
Linda M. Morgan, M.B.A., R.Ph.
Marc Sherman, J.D.
Karen Smith
Peggy Willocks
Page Morton Black: 1916-2013
In 2013, the Parkinson's Disease Foundation (PDF) lost a great, muchloved, deeply admired ambassador for all those who live with Parkinson’s disease — our Chairman Emeritus Page Morton Black. It was
William Black, Mrs. Black’s late husband and founder of the Chock full
o’Nuts coffee and restaurant chain, who created PDF in 1957. Mrs.
Black served as Secretary of PDF until assuming the role of Chairman
after her husband’s death in 1983. She resigned from the Board in
2012, serving as Chairman Emeritus until her death. In 2005, PDF
presented Mrs. Black with its Lifetime Achievement Award.
Image Credits:
Page 4
Page 6
Page 8
Page 9
Page 10
Page 14
Page 16
Page 17
Page 18
Page 19
Page 20
Page 21
Page 22
Page 24
Page 25
Page 29
©2014 Parkinson’s Disease Foundation
Janet Charles
Courtesy of Dr. Sheng-Han Kuo
Courtesy of Dr. E. Ray Dorsey
Luigi D’Astolfo
Janet Charles
Michael Blanchard
Janet Charles (top)/
Patrick McMullan (bottom)
Patrick McMullan
Janet Charles (bottom)
Janet Charles
Patrick McMullan
Janet Charles
Patrick McMullan (top)
Janet Charles (top)
Patrick McMullan (top)/
Janet Charles (bottom)
Patrick McMullan
(800) 457-6676 | www.pdf.org | [email protected]

2012-2013 Biennial Report - Parkinson`s Disease Foundation

Transcription

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