English Version - Cancer Support Team

Transcription

Cancer Support Team
2900 Westchester Ave., Suite 103
Purchase, NY 10577
www.cancersupportteam.org
914.777.2777
Life Lines is a publication of
Cancer Support Team, a nonprofit
organization that provides free
support, including nursing, social
work and other services, to cancer
patients and their families.
For information, please call us
at 914.777.2777.
Life Lines
A resource for
cancer patients
& their families
Cancer Support Team Life Lines
WELCOME
More than 25 years ago we created Life Lines to
make it easier for those diagnosed with cancer, as
well as those who help care for them, to have fast,
easy access to supportive resources.
This informative guide, provided free of charge,
contains details on many of the local and national
organizations that serve the needs of individuals
with cancer and their families. Included are brief
descriptions, contact information, phone numbers
and email and website addresses.
We hope you find Life Lines a useful resource. If you
need an additional copy for yourself, or for someone
you know, please contact us at 914-777-2777.
Warmly,
Cancer Support Team
© 2014, Cancer Support Team
LL-9/14
Dedication
We dedicate this edition of Life Lines to the late
Arnold M. Wald, M.D., a dear friend, co-founder and
Chair Emeritus of Cancer Support Team (CST).
In the 1970s, while in active practice as a radiation
oncologist in Rye, New York, Dr. Wald realized that
although his patients with cancer had access to treatment
for their tumors, there were few services available to help
them and their families with their needs for companionship
and support. Along with Gayle Lee, a registered nurse
who had experience in patient advocacy, Dr. Wald
launched Cancer Support Team in 1978. Today, Cancer
Support Team continues to carry out Dr. Wald’s mission
– to provide nursing visits, counseling, information and
transportation assistance to cancer patients and their loved
ones completely free of charge.
We are forever indebted to Dr. Wald for his vision and his
continued dedication to CST over the years.
914-777-2777
n
3
Founded in 1978, Cancer Support
Team is a nonprofit organization that
provides free nursing care, social work
counseling and additional support
services to individuals, families
and caregivers who live in lower
Westchester. Since our inception, we
have served thousands of individuals
and families.
Our focus is to enhance the quality of
life for those affected by cancer at any
stage of the disease, and to provide
ongoing support as their needs and
concerns change over time.
We do most everything
for cancer patients ...
except send them a bill
Cancer Support Team’s free,
comprehensive services include:
■■ Nursing
Care Management
■■ Counseling
■■ Advocacy
■■ R
eferrals
to Community Resources
■■ F
inancial
and Transportation
Assistance
■■ House
Calls
■■ Telephone
4
Consultations
Why Cancer Support Team
is unique
CST is the only Westchester-based
home care program that provides all
services free of charge and without
regard to insurance coverage. We are
also one of the few agencies providing
financial and transportation assistance.
To find out more about what Cancer
Support Team can do for you, please
call us at 914-777-2777, visit us at
www.cancersupportteam.org and
Like us on Facebook.
Table of contents
How to Use This Guide
6
Topic Index
8
Provider Listing
20
Glossary60
Notes & Phone Numbers
65
acknowledgements
Cancer Support Team would like to
thank Gina Bruce, Project Manager,
Hilary Cantilina, Designer, Lena
Trager, student intern, and Donna
Gaudet and Joe DiSanto, volunteers,
as well as our staff and the many other
volunteers who worked so hard to
update this edition of Life Lines.
In addition, we thank The Community
Fund of Bronxville, Eastchester and
Tuckahoe for its generous support for
this important initiative.
Finally, our deepest gratitude to
Swim Across America of Long Island
Sound for its continuous generosity
that allows us to offer free supportive
services to those affected by cancer at
any stage of the diagnosis.
914-777-2777
5
HOW TO USE THIS GUIDE
BY NAME
If you already know the name of the
organization, look for it in the A–Z
Provider Listing beginning on page 20.
There you will find contact information
and a brief description.
BY TOPIC
Don’t know the name of the
organization? Go to the Topic Index
on page 8. There you will find
organizations listed by topic, along
with the page number where you can
find more information.
CAN’T FIND IT? GIVE US A CALL.
If you cannot find a resource that you
need, please call Cancer Support Team
at 914-777-2777 and we will try to
help you locate that information.
Please keep in mind that there are
numerous organizations in Life Lines
that offer a wide variety of services,
which lack of space does not allow
us to include. For example, many
hospitals provide acute care, longterm care, rehab, adult day care
services, transportation, doctor
referrals and more. Again,
please call Cancer Support Team
for more details – or call the
organization directly.
6
Also not included are businesses
like medical supply companies and
pharmacies. These are generally
easy to find through your local
telephone book, and, of course,
you can call Cancer Support Team
at 914-777-2777 for help.
NEED A MEDICAL CARE
PROVIDER?
Should you need the name of a
doctor, a therapist, or other medical
care provider, Cancer Support Team
recommends that you get a referral
through your local hospital, a friend
or a family member. If you need the
name of a resource who can provide
you with a referral, please call us at
914-777-2777. Many organizations
listed in Life Lines also provide
names of physicians and other referrals
as part of their services.
NEED HELP IN ANOTHER
LANGUAGE?
A great number of the organizations
listed in Life Lines offer bilingual
or multilingual services. Although
we have identified as many as we
are aware of, there may be many
more. Please contact the organization
directly to learn what language
services are available.
MEDICAL LANGUAGE
PLEASE KEEP IN MIND
When you have a medical condition,
you often hear words that aren’t
commonly used in everyday speech,
and which may be confusing. To help
you understand some of these medical
terms, a glossary with pronunciations
and brief definitions begins on page
60. Many cancer support websites
include glossaries as well. We also
encourage you to ask your medical
care provider for an explanation
when you hear a word or phrase
you don’t understand.
There are, of course, many more
resources available to cancer patients
and their families than we have room
for in Life Lines. We have tried to
include the ones that we have
found to be most commonly used by
our staff and our patients.
MAKE IT PERSONAL
The last few pages of Life Lines have
space for your notes and important
phone numbers such as doctors and
emergency contacts.
KNOW AS MUCH AS YOU CAN
At Cancer Support Team, we believe
it is important for you to know as
much as you can about your illness,
and the treatment options available
to you. Therefore, we urge you to:
■■ Draw
upon as many resources as
you can to get the information that
you need.
■■ Ask
your doctor or other health
care providers to explain anything
you want more detail on or don’t
understand.
We have also done our best to ensure
that the organizations we’ve listed
are reliable and helpful, and that the
information we’ve provided is correct.
If you have any problems with any
of the resources, or find errors,
please call us at 914-777-2777 and let
us know.
HAVE A SUGGESTION?
If you know of a resource that
you think would be helpful to others,
please contact Cancer Support Team at
914-777-2777 with the details so
that we can consider it for our website
and the next edition of Life Lines.
Note: Cancer Support Team has made every effort to
ensure that the information included in Life Lines is
up to date and accurate. We are not responsible for
printer and/or typographical errors, or for data that
changed over time. If you have been unable to
contact an organization because the information is
incorrect, please contact us at 914-777-2777 so that
we can help you find the resource you need, as well
as update our records.
■■ Call
Cancer Support Team at
914-777-2777 whenever you need
extra help or have a question.
914-777-2777
7
TOPIC INDEX
Here is a listing, by topic, of all the
organizations and resources in Life
Lines. If an organization offers several
services, it may be listed under more
than one topic header.
■■ Greenwich
You can locate an organization by
topic, then turn to the page number
shown for a detailed description and
contact information. You can also find
organizations listed alphabetically
starting on page 20.
■■ Visiting
If you cannot find an organization
or service that you need, please
call Cancer Support Team at
914-777-2777. We will help you locate
that organization, or recommend one
that provides similar services and
resources.
(page 35)
■■ Lawrence
(page 40)
■■ My
Nurse Association of
Hudson Valley (page 56)
■■ Visiting
Nurse Services in
Westchester and Putnam (page 56)
■■ Visiting
Nurse Service of New York
(page 57)
BEREAVEMENT SERVICES
Information and support groups for
adults and children mourning the loss
of a loved one.
■■ Bereavement
(page 23)
■■ Caring
Organizations that offer a variety
of home health care options to
housebound patients.
■■ Hospice
■■ Dominican
■■ Hudson
■■ Expanded
■■ Iona
■■ Family
■■ Jansen
Support Team (page 26)
Sisters Family Health
Services (page 31)
In-home Services for the
Elderly (EISEP) (page 33)
Service Society of Yonkers
(page 33)
8
Home Care of Westchester
Second Home (page 46)
AT-HOME CARE
■■ Cancer
Hospital and Hospice
Center of Westchester
Connections (page 29)
& Palliative Care of
Westchester (page 37)
■■ Hospice
Care in Westchester and
Putnam (page 37)
Valley Cancer Resource
Center (page 38)
Marriage and Family Therapy
Center (page 38)
Hospice and Palliative Care
(page 39)
■■ Pathways
to Care (page 49)
■■ St. Ann’s
Church (page 52)
■■ Scarsdale/Edgemont
Family
Counseling Services (page 53)
■■ Westchester
Jewish Community
Services (page 57)
■■ Breast
Cancer Society, Inc., The
(page 24)
■■ Cancer
Services Program of the
■■ Cancer
Support Community
(page 26)
■■ Cancer
BEREAVEMENT SERVICES FOR
CHILDREN AND TEENS
■■ Children’s
Information and support groups for
children mourning the loss of a loved
one.
■■ Encore
■■ Bereavement
–The Tree House (page 23)
■■ Caring
Circle, The (page 28)
CANCER-SPECIFIC RESOURCES
Information and support services for
specific types of cancer.
■■ Adelphi
NY Statewide Breast
Cancer Hotline and Support Program
(page 20)
■■ After
Breast Cancer Diagnosis
(page 20)
■■ American
Brain Tumor Association
■■ American
Breast Cancer Foundation
■■ American
Cancer Society (page 21)
(page 21)
(page 21)
■■ American
Childhood Cancer
Organization (page 22)
■■ Bladder
Cancer Advocacy Network
(page 23)
■■ Blood
& Marrow Transplant
Information Network (page 24)
914-777-2777
(page 30)
Brain Tumor Foundation
– Greenwich, CT YWCA
(Breast Cancer) (page 32)
■■ Fight
Colorectal Cancer (page 34)
■■ Foundation
(page 34)
■■ Gilda’s
for Women’s Cancer
Club Westchester (page 35)
■■ International
(page 39)
Myeloma Foundation
■■ Kidney
Cancer Association
(page 39)
■■ Leukemia
& Lymphoma Society
Westchester/Hudson Valley Chapter
(page 40)
■■ Liddy
Shriver Sarcoma Initiative,
The (page 41)
■■ LIVESTRONG
The (page 41)
■■ Lung
Foundation,
Cancer Alliance (page 42)
■■ Lustgarten
Foundation, The (page 42)
■■ Making
Headway Foundation
(page 43)
■■ Miles
of Hope Breast Cancer
Foundation (page 45)
■■ National
(page 46)
9
■■ National
Lymphedema Network,
The (page 47)
■■ National
Ovarian Cancer Coalition
(page 47)
■■ National
Prostate Cancer Coalition
(page 48)
■■ New York
State Prostate Cancer
Coalition (page 48)
■■ OncoLink
(page 49)
■■ Pancreatic
Cancer Network
(page 49)
■■ Pediatric
(page 50)
■■ SHARE
(Self Help for Women with
Breast or Ovarian Cancer) (page 53)
■■ Skin
Cancer Foundation (page 54)
■■ Support
Connection (page 54)
■■ Thyroid
Head & Neck Cancer
■■ Zero:
The End to Prostate Cancer
(page 59)
CAREGIVER AND FAMILY
SUPPORT
Organizations that can offer help,
information and time off to family
members, friends and caregivers
of cancer patients.
■■ Cancer Support Community
(page 26)
■■ Cancer
■■ Candlelighters
NYC (page 27)
■■ Caregiver
Resource Service
Centers (page 27)
■■ Caring
10
■■ Directions
in Aging (page 31)
■■ Expanded
■■ Gilda’s
■■ Guidance
Center of Westchester,
The (page 36)
■■ Hospice
Putnam (page 37)
■■ Iona
Center (page 38)
■■ Ken
Hamilton Caregivers Center
(page 39)
■■ Making
Headway Foundation
(page 43)
■■ My
■■ Pathways
■■ Project
to Care (page 49)
Time Out (page 51)
■■ SKIP (Sick
Kids Need Involved
People) (page 54)
■■ Support
■■ White
Plains Hospital Senior
Services (page 58)
CHILDREN AND TEEN ASSISTANCE
Information, organizations and
support for children and teenagers.
■■ American Childhood Cancer
■■ Bereavement
–The Tree House (page 23)
■■ Candlelighters
■■ Caring
■■ Chai
NYC (page 27)
Circle, The (page 28)
Lifeline (page 29)
■■ Danny
Fund, The (page 31)
■■ Double
H Ranch (page 32)
■■ Friends
of Danielle, Ltd. (page 34)
■■ Friends
of Karen (page 34)
■■ Gilda’s
■■ Group
Loop (page 36)
■■ Guidance
The (page 36)
■■ Hole
in the Wall Gang Camp,
The (page 36)
■■ Kids
Cancer Network (page 40)
■■ Make-A-Wish
Headway Foundation
(page 43)
information about how to become
involved in a trial.
■■ Cancer
411 (page 25)
■■ ClinicalTrials.gov
COUNSELING
Services that provide advice and/or
information given by either trained
professionals or people who have
been through the same experience.
Counseling can offer everything
from practical knowledge to
emotional support.
■■ Making
■■ After
■■ Marty
■■ American
Lyons Foundation (page 43)
■■ Mental
Health Association of
Westchester, The (page 45)
■■ Miles
■■ National
Children’s Cancer Society
(page 46)
■■ Pathways
to Care (page 49)
■■ Pediatric
(page 50)
■■ SKIP (Sick
Kids Need Involved
People) (page 54)
■■ Sunshine
CLINICAL TRIALS
Many organizations provide
information about clinical trials
and referral services. The following
websites are search databases for
clinical trials around the country.
Please ask your doctor for more
914-777-2777
(page 30)
(page 20)
■■ CancerCare
(page 25)
■■ Cancer
Support Community (page 26)
■■ Cancer
■■ Community
Counseling Center of
Larchmont/Mamaroneck (page 30)
■■ Directions
in Aging (page 31)
■■ Dominican
Services (page 31)
■■ Family
Services of Westchester
(page 33)
■■ Guidance
The (page 36)
■■ Hudson
Center (page 38)
■■ Imerman Angels
(page 38)
■■ Iona
Center (page 38)
■■ Making
Headway Foundation
(page 43)
11
■■ Mental
■■ Miles
■■ Pathways
to Care (page 49)
■■ Scarsdale/Edgemont
Family
Counseling Services (page 53)
■■ Support
■■ Westchester
Jewish Community
Services (page 57)
different types of financial aid (medical
expenses, help with rent, free
screenings, etc.).
■■ American
■■ Bone
Marrow Foundation, The
(page 24)
■■ Breast
Cancer Society, Inc., The
(page 24)
■■ CancerCare
Services Program of the
■■ Cancer
Programs that help cancer patients
with their fitness and health aside from
medical treatment and care.
■■ Child
(page 21)
Breast Cancer Foundation
■■ Bendheim
Integrative Medicine
Center at Memorial Sloan-Kettering
Cancer Center (page 23)
■■ Encore
(page 32)
■■ Gilda’s
■■ Integrative
Medicine Service at
Memorial Sloan-Kettering Cancer
Center (page 38)
■■ LIVESTRONG
Exercise Program
at the Rye YMCA (page 41)
■■ Support
(page 25)
■■ Cancer
EXERCISE PROGRAMS
■■ American
■■ Chai
Lifeline (page 29)
Health Plus (page 29)
■■ Community
(page 30)
■■ Danny
Health Advocates
Fund, The (page 31)
■■ EPIC
– Elderly Pharmaceutical
Insurance Coverage (page 32)
■■ Friends
of Danielle, Ltd. (page 34)
■■ Friends
of Karen (page 34)
■■ Genentech®
– Patient Assistance
Program (page 35)
■■ Genentech®
– Access to Care
■■ Healthwell
■■ Leukemia
& Lymphoma Society
(page 40)
FINANCIAL ASSISTANCE
■■ Medicaid
(MA/Medicaid) (page 44)
Government, private and nonprofit
organizations that can help patients
and their families with their expenses.
Different organizations may offer
■■ Medicare
(page 44)
12
■■ Needymeds
(page 48)
■■ Partnership
for Prescription
Assistance (page 49)
■■ Patient Access
(page 50)
Network Foundation
■■ Patient
Services Incorporated (PSI)
(page 50)
■■ Rx Assist
■■ Rx
(page 52)
Outreach (page 52)
■■ Ulman
Cancer Fund for Young
Adults, The (page 55)
GOVERNMENT INSURANCE
PLANS
Government-sponsored
medical insurance plans.
■■ Child
Health Plus (page 29)
■■ Expanded
■■ Medicaid
(MA/Medicaid) (page 44)
■■ Medicare
(page 44)
HELP IN OTHER LANGUAGES
Many organizations in this guide
offer bilingual or multilingual
services. Whenever possible, Life
Lines cites language assistance
availability within the organization’s
alphabetical listing.
HOSPICE CARE
Organizations that offer hospice
services, or that refer patients to them.
■■ Calvary
Hospital (page 24)
■■ Greenwich
(page 35)
■■ Hospice
& Palliative Care
Association of NY State (page 37)
914-777-2777
■■ Hospice
■■ Hospice
Putnam (page 37)
■■ Jansen
(page 39)
■■ National
■■ Pain
and Palliative Care Program,
The (at Memorial Sloan-Kettering
Cancer Center) (page 49)
■■ Pathways
to Care (page 49)
■■ Phelps
Hospice (page 51)
■■ Rosary
Hill Home (page 52)
HOSPITALS/INPATIENT CARE/
OUTPATIENT CARE
Hospitals and specialized inpatient
and outpatient facilities in the New
York metropolitan area that provide
services to cancer patients. Please
note, this is not a complete listing.
■■ Burke
Rehabilitation Hospital,
Winifred Masterson (page 24)
■■ Calvary
Hospital (page 24)
■■ Dickstein
Cancer Treatment Center
White Plains Hospital (page 31)
■■ Greenwich
(page 35)
■■ Lawrence
Hospital Center (page 40)
■■ Lawrence
Hospital Center Cancer
Survivorship Program (page 40)
■■ Memorial
Sloan-Kettering at Phelps
Memorial Hospital Center (page 44)
13
■■ Memorial
Sloan-Kettering Cancer
Center (page 45)
■■ Montefiore
Mount Vernon (page 45)
■■ Montefiore
New Rochelle (page 45)
■■ Northern
Westchester Hospital
Center (page 48)
■■ Phelps
Memorial Hospital Center
(page 51)
■■ St.
John’s Riverside Hospital
(page 53)
■■ St.
Joseph’s Medical Center
(page 53)
■■ Westchester
(page 58)
Medical Center
■■ White
Plains Hospital Center
(page 58)
LEGAL HELP AND ADVOCACY
Organizations that offer legal support
and/or advocacy, insurance, living
wills, DNR orders, job-related issues
and other legal concerns.
■■ Aging
with Dignity (page 20)
■■ Cancer Advocacy
(page 25)
■■ Cancer
Project, The
and Careers (page 25)
■■ Cancer
Legal Resource Center
(page 26)
■■ Community
(page 30)
■■ Directions
Health Advocates
in Aging (page 31)
■■ Family
(page 33)
■■ Legal
Services of the Hudson Valley
(page 40)
14
■■ Medicare
(page 44)
Rights Center, The
■■ Pace
Women’s Justice Center
(page 49)
■■ Patient Advocate
(page 50)
Foundation
■■ Patient
Services Incorporated
(PSI) (page 50)
NUTRITION INFORMATION
AND RESOURCES
Organizations that provide either
meals or other nutrition to patients,
or offer support and advice to patients
receiving intravenous feedings.
■■ Dominican
Services (page 31)
■■ Meals
on Wheels/Home Delivered
Meal Program (page 43)
■■ Oley
■■ Shepherd’s
Flock (page 53)
PROSTHETIC AND WIG SUPPLIERS
Suppliers who provide replacement
or cover-up options to patients who
have experienced loss of hair, breast
or a limb due to cancer or cancer
treatment.
■■ Allura (page 21)
■■ Bitz
n’ Pieces (page 23)
■■ Chemo
Savvy (page 29)
■■ Entre
Nous Mastectomy Boutique
(page 32)
■■ Especially Yours
■■ Fordham
(page 34)
(page 32)
Wigs of Westchester
■■ Hanger
Prosthetics and Orthotics
(page 36)
■■ Hip
Hats With Hair (page 36)
■■ Locks
of Love (page 42)
■■ Nordstrom
In-Store Breast
Prosthesis Program (page 48)
■■ Queen’s
Wig (page 51)
■■ Tender
Loving Care (page 55)
■■ Tiffany
Wigs (page 55)
■■ Underneath
■■ Wig
It All (page 55)
Exchange, The (page 58)
■■ Bendheim
Integrative Medicine
Center at Memorial Sloan-Kettering
Cancer Center (page 23)
■■ Chemo
Comfort (page 29)
■■ Continuum
Center for Health &
Healing, The (page 30)
■■ Dream
■■ Gilda’s
■■ Hospice
and Palliative Care of
■■ Integrative
Medicine Service at
Memorial Sloan-Kettering Cancer
Center (page 38)
REPRODUCTIVE ISSUES
AND CANCER
■■ Jansen
Organizations that help cancer
patients deal with the fertility
problems that can arise as a result
of cancer or cancer treatments.
■■ LIVESTRONG
■■ Fertile Action
■■ St.
■■ American
Society for Reproductive
Medicine (page 22)
■■ FertileHOPE
(page 33)
(page 33)
RESOURCES THAT COMPLEMENT
MEDICAL CARE
Sources for non-medical treatment
options and products for cancer
patients. These may include yoga,
meditation, massage, acupressure,
imagery and others. (Note: Cancer
Support Team does not recommend
that any non-medical therapies
completely replace the care
a doctor recommends. But, we do
recognize that one or more may be a
valuable addition to the medical care
one receives.)
914-777-2777
(page 39)
Exercise Program at
the Rye YMCA (page 41)
■■ Look
Good...Feel Better (page 42)
■■ Miles
John’s Riverside Hospital (page 53)
■■ SHARE
(Self-Help for Women with
■■ Shop
Well With You (page 54)
■■ Support
■■ Thru
My Eyes (page 55)
■■ Traid-In
Equipment Exchange
Service (page 55)
SOMEWHERE TO STAY
Residences where cancer patients
and/or their families can stay at low
or no cost during their treatment.
■■ Hope
Lodge (A service of American
Cancer Society) (page 37)
15
■■ Joe’s
House (page 39)
■■ Ronald
McDonald House (page 52)
■■ Dream
■■ Encore
(Breast Cancer) (page 32)
SUPPORT SERVICES AND
CANCER INFORMATION
■■ Family
Listed here are organizations that
provide a wide range of services
such as information, publications,
websites, referrals, support groups,
survivorship programs and more
to cancer patients and their families.
■■ Family
■■ After
(page 20)
■■ American
Brain Tumor Association
■■ American
(page 21)
Childhood Cancer
Services of Westchester
(page 33)
(page 33)
■■ Fight
■■ Foundation
(page 34)
■■ Friends
of Karen (page 34)
■■ Gilda’s
■■ Good
Wishes Scarves (page 35)
■■ Greenwich
(page 35)
■■ American
■■ Guidance
■■ Cancer
411 (page 25)
■■ Cancer
and Careers (page 25)
■■ Hope
■■ CancerCare
(page 25)
■■ Cancer
Hope Network (page 26)
■■ Cancer
Support Community (page 26)
■■ Cancer
■■ Cancer
Survivors Online (page 27)
■■ CaringBridge
■■ Caring
■■ Chai
Lifeline (page 29 )
■■ Chemo
Comfort (page 29)
■■ Children’s
(page 30)
■■ Community
(page 30)
16
(page 29)
Health Advocates
for Women’s Cancer
(page 36)
Center of Westchester, The
Scarves (page 37)
■■ Hospice
& Palliative Care
Association of NY State (page 37)
■■ Hospice
■■ Hospice
Journey (page 38)
■■ Hudson
Center (page 38)
■■ International
(page 39)
Myeloma Foundation
■■ Jansen
(page 39)
■■ Lawrence
Hospital Center Cancer
Survivorship Program (page 40)
■■ Leukemia
& Lymphoma Society –
(page 40)
■■ Liddy
Shriver Sarcoma Initiative,
The (page 41)
■■ LIVESTRONG
(page 41)
Foundation, The
■■ Look
Good...Feel Better (page 42)
■■ Lung
■■ Lustgarten
(page 42)
Foundation, The
■■ Make-A-Wish
■■ Making
Headway Foundation
(page 43)
■■ MaleCare
■■ Marty
(page 43)
Lyons Foundation (page 43)
■■ Memorial
Sloan-Kettering
Survivorship Center (page 45)
■■ St.
John’s Riverside Hospital (page 53)
■■ SHARE
(Self Help for Women with
■■ Shop
Well With You (page 54)
■■ Support
■■ Thru
My Eyes (page 55)
■■ Thyroid
Head & Neck Cancer
■■ Ulman
Cancer Fund for Young
Adults, The (page 55)
■■ United
Ostomy Associations of
America, Inc. (page 56)
■■ United
Way of Westchester and
Putnam Helpline (page 56)
■■ Vital
Options International (page 57)
■■ Mental
■■ Westchester
■■ Miles
■■ Westchester
■■ MyLifeLine
■■ My
(page 45)
■■ National
Cancer Institute (page 46)
■■ National
Children’s Cancer Society
(page 46)
■■ National
Coalition for Cancer
Survivorship (NCCS) (page 47)
■■ National
LGBT (Lesbian, Gay,
Bisexual, Transgender) Cancer
Network (page 47)
■■ National
Prostate Cancer Coalition
(page 48)
■■ Oley
■■ Pathways
to Care (page 49)
■■ St. Ann’s
Church (page 52)
914-777-2777
Jewish Community
Services (page 57)
Self-Help Clearing
House (page 58)
■■ What
Matters Now (page 58)
■■ White
Plains Hospital Senior
Services (page 58)
■■ Zero:
The End to Prostate Cancer
(page 59)
TELEPHONE SERVICES
Help and support over the
telephone. May be offered by
either a trained professional or
someone who has experienced
a similar situation.
■■ Adelphi
NY Statewide Breast
Cancer Hotline and Support Program
(page 20)
17
■■ After
(page 20)
■■ Ask
RPCI (page 22)
■■ Bloch
Cancer Hotline (page 24)
■■ Bone
Marrow Foundation, The
(page 24)
■■ Cancer
Hope Network (page 26)
■■ Cancer
Support Community
(page 26)
■■ Fight
■■ Imerman Angels
(page 38)
■■ L.I.N.K.S.
Parent-to-Parent
Telephone Support for Families of
Children with Cancer (page 41)
■■ LIVESTRONG
(page 41)
■■ Lung
Foundation, The
■■ Medicare
(page 44)
Rights Center, The
■■ Miles
■■ Oley
■■ Support
■■ United
Way of Westchester and
Putnam Helpline (page 56)
TRANSPORTATION
Services (air and ground) that offer
transportation for patients traveling to
and from medical appointments. Some
of these services may be offered at
low or no cost, or covered by medical
insurance.
■■ Air
18
Care Alliance (page 20)
■■ Air
Charity Network (page 21)
■■ Angel
Flight Northeast (page 22)
■■ Bee-Line
■■ Cancer
ParaTransit (page 22)
■■ Corporate Angel
(page 31)
■■ My
Network, The
■■ National
Patient Travel Center, The
(page 47)
■■ Project
Time Out (page 51)
■■ RideConnect
of Westchester (A
program of Family Services of
Westchester) (page 51)
■■ Road
to Recovery (A service of
American Cancer Society) (page 51)
■■ WestFair
Rides (page 58)
WEBSITES
Organizations that only provide online
support services to cancer patients
and their families. (Please note: Many
organizations in Life Lines have
websites; see individual listings for
website addresses.)
■■ Association
of Cancer Online
Resources (page 22)
■■ Cancer
411 (page 25)
■■ Cancer
Survivors Online (page 27)
■■ CaringBridge
■■ Group
Loop (page 36)
■■ Hospice
■■ Kids
(page 29)
Journey (page 38)
Cancer Network (page 40)
■■ MyLifeLine
(page 45)
■■ Oncochat
(page 49)
■■ Oncolink
(page 49)
■■ Vital
Options International (page 57)
■■ Westchestergov.com
■■ What
(page 57)
Matters Now (page 58)
WIG AND PROSTHETIC SUPPLIERS
Suppliers that provide replacement
or cover-up options to patients who
have experienced loss of hair, breast
or a limb due to cancer or cancer
treatment.
■■ Allura
■■ Bitz
(page 21)
n’ Pieces (page 23)
■■ Chemo
Savvy (page 29)
■■ Entre
Nous Mastectomy Boutique
(page 32)
■■ Especially Yours
■■ Fordham
(page 34)
(page 32)
Wigs of Westchester
■■ Hanger
Prosthetics and Orthotics
(page 36)
■■ Hip
Hats With Hair (page 36)
■■ Locks
of Love (page 42)
■■ Nordstrom
In-Store Breast
Prosthesis Program (page 48)
■■ Queen’s
Wig (page 51)
■■ Tender
Loving Care (page 55)
■■ Tiffany
Wigs (page 55)
■■ Underneath
■■ Wig
It All (page 55)
Exchange, The (page 58)
914-777-2777
19
PROVIDER LISTING
ADELPHI NY STATEWIDE BREAST
CANCER HOTLINE AND SUPPORT
PROGRAM
Hotline, website, support groups and
referrals to hospitals and social service
agencies for people with breast cancer.
1 South Avenue
Garden City, NY 11530
800-877-8077 (Toll-Free)
www.adelphi.edu/nysbreastcancer
[email protected]
■■ Community
Education Programs
■■ Hotline
■■ Legislative Advocacy
■■ Multilingual
■■ Support
(Spanish)
Groups
AFTER BREAST CANCER
DIAGNOSIS (ABCD)
One-to-one support for women battling
breast cancer. Website includes support
services, a helpline and educational
programs.
5775 N. Glen Park Road, Suite 201
Glendale, WI 53209
800-977-4121 (Toll-Free) (Breast
Cancer Helpline)
www.abcdbreastcancersupport.org
20
AGING WITH DIGNITY
Providers of “Five Wishes” document,
a living will that lets patients appoint
someone to make medical decisions on
their behalf.
P.O. Box 1661
Tallahassee, FL 32302
888-5-WISHES (Toll-Free)
(888-594-7437) (Toll-Free)
850-681-2010
www.agingwithdignity.org
[email protected]
■■ Legal Assistance
■■ Printable
Spanish
Five Wishes Available in
AIR CARE ALLIANCE
A volunteer flying organization
that assists patients with medical
transportation.
2060 State Highway 595
Lindrith, New Mexico 87029
888-260-9707 (Toll-Free Patient
Transportation Hotline)
www.aircareall.org
[email protected]
■■ Online
Listing of All Volunteer
Flight Organizations in Your Area
AIR CHARITY NETWORK
A nonprofit organization providing free
air transportation to specialized health
care facilities or distant destinations
for people in need.
877-621-7177 (Toll-Free)
www.aircharitynetwork.org
ALLURA
Fittings and styling of full cranial
prostheses, as well as help with
alternative headwear, scalp care and
new hair re-growth.
23 W. Putnam Avenue
Greenwich, CT 06830
203-869-1234
AMERICAN BRAIN TUMOR
ASSOCIATION
Information about treatment options,
clinical trials and more for patients
with brain tumors. Also offers a broad
variety of social work resources and
services.
8550 W. Bryn Mawr Ave., Ste 550
Chicago, IL 60631
800-886-2282 (Toll-Free Careline)
773-577-8750
www.abta.org
[email protected]
■■ Clinical
■■ Services
Trial Referral
for Children with Cancer
■■ Services
in Family
■■ Support
Groups
914-777-2777
AMERICAN BREAST CANCER
FOUNDATION (ABCF)
Financial assistance for uninsured and
underserved people who require breast
cancer screenings and diagnostic tests.
1220 B East Joppa Road, Suite 332
Towson, Maryland 21286
410-825-9388
877-539-2543 (Toll-Free Breast
Cancer Assistance Program)
www.abcf.org
[email protected]
■■ Breast
Cancer Assistance Program
(BCAP) for Diagnostic Services and
Screening
■■ Fit
for Life Exercise Program
■■ Stay
in Touch Awareness Program
AMERICAN CANCER SOCIETY
Information, education and support for
cancer patients and their families.
2 Lyon Place
White Plains, NY 10601
914-949-4800
800-ACS-2345 (Toll-Free)
(800-227-2345) (Toll-Free)
24-hour hotline
www.cancer.org
■■ Clinical
Trial Referral
■■ Educational
Materials
■■ Hotline
■■ Multilingual
■■ Reach
to Recovery Program
■■ Referral
Service
21
AMERICAN CHILDHOOD
CANCER ORGANIZATION
A youth newsletter, website, education
and support for children and their
families.
3910 Warren Street
Kensington, MD 20895
800-366-2223 (Toll-Free)
www.acco.org
■■ Bilingual
■■ Videos
(Spanish)
■■ Free
Books for Children About
Cancer
AMERICAN SOCIETY FOR
REPRODUCTIVE MEDICINE
Website offering educational
information on infertility and other
reproductive disorders.
1209 Montgomery Highway
Birmingham, AL 35216
205-978-5000
www.asrm.org
[email protected]
ANGEL FLIGHT NORTHEAST
No-charge air transportation
throughout the Northeast for patients
requiring lifesaving medical care.
Lawrence Municipal Airport
492 Sutton Street
North Andover, MA 01845
800-549-9980 (Toll-Free)
978-794-6868
www.angelflightne.org
22
ASK RPCI
(A service of Roswell Park
Cancer Institute)
Free person-to-person contact by
telephone with information specialists
who can answer questions, provide,
information and free literature, and
offer referrals to services.
877-275-7724 (Toll-Free)
www.roswellpark.org
[email protected]
■■ Bilingual
(Spanish)
ASSOCIATION OF CANCER
ONLINE RESOURCES
Directory of more than 140 online
cancer communities that provide
support to anyone affected by cancer.
173 Duane Street, Suite 3A
New York, NY 10013
212-226-5525
www.acor.org
■■ Communities
Cancers
■■ Pediatric
Listed by Specific
and adult communities
BEE-LINE PARATRANSIT
(A program of Westchester County
Transportation Services)
Shared rides for disabled residents.
Closely follows the Bee-Line
Bus transportation services.
Reservations must be made at
least a day in advance.
914-995-PARA (Call for reservations)
(914-995-7272)
BENDHEIM INTEGRATIVE
MEDICINE CENTER (At Memorial
Sloan-Kettering Cancer Center)
An entire suite of services and
therapies in a spa-like setting. Open
to the public regardless of hospital
affiliation. There is a fee for services.
1429 First Avenue (At 74th Street)
New York, NY 10021
646-888-0800
■■ Acupuncture
■■ Classes:
Fitness, Movement and
Spiritual/Energy
■■ Individual
■■ Medical
Therapies
Massage
■■ Nutritional
and Herbal Counseling
■■ Reiki
BEREAVEMENT CENTER OF
WESTCHESTER
Programs designed to help adults and
children move through the pain of grief
towards hope and healing.
670 White Plains Road
Scarsdale, NY 10583
914-961-2818, ext. 1317
www.thebereavementcenter.org
[email protected]
■■ Adult
Bereavement Support Groups
■■ Community
■■ Individual
914-777-2777
Outreach
Bereavement Counseling
■■ School
Outreach
■■ The
Tree House Support Groups
for Children
BITZ N’ PIECES
An extensive variety of wigs and
hairpieces. Prices include styling,
sizing and follow-up appointment.
1841 Broadway
Suite 201
New York, NY 10023
212-397-0711
www.bitzandpieces.com
Please call to schedule an appointment.
■■ Expert
Fitters and Stylists
■■ Private
Rooms
BLADDER CANCER ADVOCACY
NETWORK
Focused on increasing public
awareness of bladder cancer,
advancing research, and providing
educational and supportive services
for those affected by bladder cancer.
4915 St. Elmo Avenue, Suite 202
Bethesda, MD 20814
301-215-9099
888-901-BCAN (Toll-Free)
(888-901-2226) (Toll-Free)
www.bcan.org
[email protected]
■■ Clinical
Trials Matching Service
■■ Online
Support Community
■■ Patient
Handbook (Multilingual)
■■ Support
Group Listing
23
BLOCH CANCER HOTLINE
Toll-free hotline that connects callers
to survivors of their specific type of
cancer. A program of the R.A. Bloch
Cancer Foundation.
1 H&R Block Way
Kansas City, MO 64105
800-433-0464 (Toll-Free)
816-854-5050
www.blochcancer.org
[email protected]
BLOOD & MARROW TRANSPLANT
INFORMATION NETWORK
A not-for-profit organization that
serves the needs of the transplant
community.
2310 Skokie Valley Road, Suite 104
Highland Park, IL 60035
888-597-7674 (Toll-Free)
847-433-3313
www.bmtinfonet.org
[email protected]
BONE MARROW FOUNDATION,
THE
Financial aid, education and
emotional support for bone marrow
and stem cell transplant patients and
their families.
515 Madison Avenue, Suite 1130
New York, NY 10022
800-365-1336 (Toll-Free)
212-838-3029
www.bonemarrow.org
[email protected]
24
■■ Financial Assistance
■■ SupportLine:
Support for Patients
Undergoing Transplants
■■ Bilingual
(Spanish)
BREAST CANCER
SOCIETY, INC., THE
Direct help and assistance, including
financial assistance, supplies,
education, referral services and
in-home care for women battling
breast cancer.
888-470-7909 (Toll-Free)
www.breastcancersociety.org
[email protected]
BURKE REHABILITATION
HOSPITAL, WINIFRED MASTERSON
Dedicated rehabilitation services for
adults to help them regain maximum
mobility and independence.
785 Mamaroneck Avenue
888-99-BURKE (Toll-Free)
(888-992-8753) (Toll-Free)
914-597-2500
www.burke.org
CALVARY HOSPITAL
An acute care hospital for advanced
cancer patients.
1740 Eastchester Road
Bronx, NY 10461
718-518-2000
www.calvaryhospital.org
■■ Home
Care
■■ Hospice
■■ Meals/Nutrition Assistance
■■ Multilingual
■■ Pain
Management
■■ Pastoral
Care
■■ Support
Groups
■■ Wound
Care Center
286 Madison Ave., 19th Floor
New York, NY 10001
212-685-5955, ext. 15
www.cancerandcareers.org
[email protected]
CANCERCARE
Free information, support groups
and more for cancer patients and
their families.
www.cancer411.org
275 7th Avenue, 22nd Floor
New York, NY 10001
800-813-HOPE (Toll-Free)
(800-813-4673) (Toll-Free)
212-712-8400
www.cancercare.org
[email protected]
■■ Search
■■ Bereavement
CANCER 411
Nonprofit organization that helps
cancer patients connect with clinical
trials.
Engine for Clinical Trials for
Various Types of Cancer
CANCER ADVOCACY PROJECT, THE
Legal help and representation provided
by volunteer attorneys to cancer
patients, survivors and their families.
42 West 44th Street
New York, NY 10036
212-382-4785
212-626-7383 (Legal Hotline)
CANCER AND CAREERS
A resource for working women who
have cancer, providing tools for
coping in the workplace, as well
as information on issues such as
disability, health insurance claims,
legal issues and more.
914-777-2777
Services
■■ Counseling
■■ Education
Workshops on
Specific Cancers
■■ Legal Assistance
■■ Multilingual
■■ Physician
■■ Services
(Spanish)
Referral
■■ Services
in Family
■■ Support
Groups and Community
Programs
25
CANCER HOPE NETWORK
Free telephone support for cancer
Two North Road, Suite A
Chester, NJ 07930
800-552-4366 (Toll-Free)
908-879-4039
www.cancerhopenetwork.org
[email protected]
■■ Multilingual
■■ Support
(Spanish)
Groups
■■ Survivor
Support Programs
CANCER LEGAL RESOURCE
CENTER
Provides information and education
about cancer-related legal issues to the
public through its national telephone
assistance line. Also conducts national
education and outreach programs for
the cancer community.
800 South Figueroa Street, Suite 1120
Los Angeles, CA 90017
213-736-1334
866-999-DRLC (Toll-Free)
(866-999-3752) (Toll-Free)
www.disabilityrightslegalcenter.org/
cancer-legal-resource-center
[email protected]
CANCER SERVICES PROGRAM OF
THE HUDSON VALLEY
Free breast, cervical and colorectal
cancer screening services for
uninsured/underinsured Westchester
County residents.
26
914-524-4107, ext. 3004
866-442-2262 (NYS Cancer Hotline,
Toll-Free)
www.health.westchestergov.com/
cancer
CANCER SUPPORT COMMUNITY
Ensures that all people affected by
cancer are empowered by knowledge,
strengthened by action and sustained
by community.
1050 17th Street, NW
Suite 500
Washington, DC 20036
888-793-WELL (Toll-Free Helpline)
(888-793-9355) (Toll-Free)
202-659-9709
www.cancersupportcommunity.org
[email protected]
■■ Cancer
Transitions Program
■■ Educational
■■ Support
■■ Online
■■ Web
Resources
Groups
Support
Chat Counseling
CANCER SUPPORT TEAM
Providers of professional services for
people with cancer and those who
care for them. Cancer Support Team
is also the only licensed home care
program in Westchester offering free
comprehensive support to help people
meet the challenges of living with
cancer.
2900 Westchester Avenue, Suite 103
Purchase, NY 10577
914-777-2777
■■ Bilingual
■■ Book
(English and Spanish)
and Brochure Library
■■ Community
Referrals
■■ Counseling
■■ House
Calls
■■ Medical
Equipment
■■ Nursing Assessment
■■ Pain
and Symptom Control
■■ Ovarian
Cancer Support Group
■■ Transportation Assistance
CANCER SURVIVORS ONLINE
A website offering links to dozens
of helpful resources, information on
specific types of cancer, connections
with other cancer patients, caregiver
information and support and more.
www.cancersurvivors.org
CANCER SURVIVORS NETWORK
CANDLELIGHTERS NYC
A nonprofit organization dedicated
to supporting and helping families
who have children living with cancer.
Assistance available for all stages of
cancer: discovery, diagnosis, treatment
and remission.
345 East 73rd Street, Apt. 2L
New York, NY 10021
www.candlelightersnyc.org
[email protected]
CAREGIVER RESOURCE SERVICE
CENTERS
Located throughout Westchester
County, these centers provide advice
and services to assist caregivers in
their role of caring for elderly family
members. There are five Caregiving
Management Full-Service Centers
and five Caregiver Resource Centers,
which provide a designated section
where extensive literature on topics of
interest to caregivers can be found.
Full-Service Centers:
Online community for cancer
survivors. Provided by the American
Cancer Society.
Alzheimer’s Association
Purchase, NY 10577
914-253-6860
www.csn.cancer.org
ElderServe Home Care
6 Executive Plaza
Yonkers, NY 10701
914-368-5500
■■ Discussion
■■ Personal
Boards and Online Chats
Survivor Pages
■■ Resource
Library
914-777-2777
Senior Programs and Services
9 South First Avenue, 10th Floor
Mount Vernon, NY 10550
914-813-6300
27
Yonkers Office for the Aging
435 Riverdale Avenue
Yonkers, NY 10705
914-377-6823
Rye Free Reading Room
1061 Boston Post Road
Rye, NY 10580
914-967-0480
Please call to make an appointment
at the center of your choice.
Caregiver Resource Centers:
Scarsdale Public Library
54 Olmstead Road
Scarsdale, NY 10583
914-722-1300
Field Library–Peekskill
4 Nelson Avenue
Peekskill, NY 10566
914-737-1212
Somers Library
Route 139, Reis Park
Somers, NY 10589
914-232-5717
Greenburgh Public Library
300 Tarrytown Road
Elmsford, NY 10523
914-993-1600
Warner Library–Tarrytown
121 N. Broadway
Tarrytown, NY 10591
914-631-7734
John C. Hart Memorial Library
1130 East Main Street
Shrub Oak, NY 10588
914-245-5262
White Plains Library
100 Martine Avenue
914-422-1400
Katonah Village Library
26 Bedford Road
Katonah, NY 10536
914-232-3508
Please call for individual library
hours.
New Rochelle Library
One Library Plaza
New Rochelle, NY 10801
914-632-7878
Ossining Public Library
53 Croton Avenue
Ossining, NY 10562
914-941-2416
Port Chester Library
1 Haseco Avenue
Port Chester, NY 10571
914-939-6710
28
CARING CIRCLE, THE
(A program of the Visiting Nurse
Association of the Hudson Valley)
A bereavement program that helps
young children share and understand
their struggles with loss and grief.
914-666-4228, ext. 336
www.vnahv.org
■■ Art,
Music and Game Activities
for Children
■■ Bereavement
Education
■■ Bereavement
Support Groups
in New Rochelle, Yonkers and
Yorktown
■■ Day
Camp
■■ Supportive
Programs
Community Outreach
CARINGBRIDGE
An online network that lets individuals,
families and caregivers stay in touch
with family and friends through free
personalized web pages.
www.caringbridge.org
■■ Support
■■ Sites
Planner Scheduling
for Caregivers
CARING CONNECTIONS
Information and support for those who
are caring for a loved one, living with
an illness or grieving a loss.
800-658-8898 (Toll-Free) (Helpline)
877-658-8896 (Toll-Free)
(Multilingual)
www.caringinfo.org
[email protected]
■■ Free
Resources on End-of-Life Care
CHAI LIFELINE
A large network of free programs and
services and family support created
to help children with cancer. Offers a
summer camp program, Camp Simcha,
for children with cancer and other
illnesses.
151 West 30th Street
New York, NY 10001
877-CHAI-LIFE (Toll-Free)
(877-242-4543) (Toll-Free)
914-777-2777
212-465-1300
www.chailifeline.org
[email protected]
■■ Crisis
Intervention
■■ Counseling
■■ Educational Assistance
■■ Telephone
Support Groups
CHEMO COMFORT
Kits containing products to help
manage the effects of chemotherapy
such as mouth sores, nausea, hair loss
and stress.
154 Christopher Street, Suite 3C
New York, NY 10014
212-675-3744
www.chemocomfort.org
[email protected]
CHEMO SAVVY
Low-cost wigs and headwear available
through a catalog and online.
P.O. Box 175
Green Mountain Falls, CO 80819
888-599-3560 (Toll-Free)
www.chemosavvy.com
[email protected]
CHILD HEALTH PLUS
Health insurance for children under
age 19 living in New York State.
Eligibility is based on family income.
800-698-KIDS (4543) (Toll-Free)
www.health.ny.gov/health_care/child_
[email protected]
29
CHILDREN’S BRAIN TUMOR
FOUNDATION
234 Stanley Ave.
Mamaroneck, NY 10543
914-698-7549
www.communitycounselingcenter.org
[email protected]
New York, NY 10016
866-228-HOPE (4673) (Toll-Free)
212-448-9494
www.cbtf.org
[email protected]
■■ Sliding
Helpful information for parents of
children who are undergoing treatment
for brain or spinal cord tumors.
■■ Annual
Teleconference
■■ Free
Resource Guide (English and
Spanish)
■■ Parent-to-Parent
■■ Telephone
Support Groups
■■ Week-Long
Families
Network
Summer Camp for
■■ Bereavement
Programs
CLINICALTRIALS.GOV
An online database of clinical trials
provided by the National Institutes of
Health.
www.clinicaltrials.gov
COMMUNITY COUNSELING
CENTER OF LARCHMONT/
MAMARONECK
A place where youths and young adults
(mostly ages 11–28) and their families
can talk about their personal and
family concerns in a comfortable and
confidential atmosphere.
30
Scale Fees (No One Is
Turned Away Due to Financial
Constraints)
■■ Staff
Comprised of Psychologists,
Social Workers and Other Qualified
Counselors
COMMUNITY HEALTH ADVOCATES
(A program of Community Service
Society of New York)
Free, confidential individual
counseling and educational
information on various health
insurance options.
105 East 22nd Street
New York, N.Y. 10010
888-614-5400 (Toll-Free) (Helpline)
www.communityhealthadvocates.org
[email protected]
■■ Multilingual
■■ Help
(170 Languages)
with Hospital Bills
■■ Education
on Insurance Plans
CONTINUUM CENTER FOR HEALTH
& HEALING, THE
Opportunities for patients to educate
themselves about new options in health
care, redefine health priorities to
promote wellness and prevention, learn
about positive lifestyle changes and
expand their relationships with health
care providers.
245 Fifth Avenue
(Between 27th and 28th Streets)
2nd Floor
New York, NY 10001
646-935-2220
www.healthandhealingny.org
CORPORATE ANGEL
NETWORK, THE
Free air transportation to cancer
patients.
Westchester County Airport
One Loop Road
914-328-1313
866-328-1313 (Toll-Free)
www.corpangelnetwork.org
[email protected]
■■ Available
Throughout the U.S.
■■ Corporate Aircraft
■■ Doctor’s
Name, Address and
Telephone Number Must Be
Provided
■■ One Adult
May Accompany Adults
and Two Adults May Accompany
Children
■■ Patient
Must Be Going to or from
Recognized Treatment, Checkup or
Consultation
DANNY FUND, THE
Financial, emotional and advocacy
support for families of children dealing
with catastrophic injury or illness.
P.O. Box 8271
Pelham, NY 10803
914-777-2777
914-843-8553
thedannyfund.org
DICKSTEIN CANCER TREATMENT
CENTER – WHITE PLAINS
HOSPITAL
Patient-focused cancer care in a highly
specialized environment, utilizing an
approach to treatment that involves the
participation of patients, families and
doctors.
2-4 Longview Avenue
914-681-2701
www.wphospital.org
DIRECTIONS IN AGING
A wide range of services for the
elderly and their caregivers and family
members.
1333A North Avenue
914-636-7347
www.directionsinaging.com
■■ Counseling
■■ Homecare
■■ Legal
for Caregivers
Monitoring
Referral
■■ Physician
■■ Respite
Referral
Care Resources
■■ Younger Adults
Mental Illness
with Physical or
DOMINICAN SISTERS FAMILY
HEALTH SERVICES
A home health agency providing
compassionate, comprehensive and
31
family-focused home care.
299 North Highland Avenue
Ossining, NY 10562
914-941-1710
www.dsfhs.org
Branch Office:
279 Alexander Ave.
Bronx, NY 10454
718-665-6557
■■ Nursing
■■ Nutritional Assistance
■■ Medical
Equipment and Supplies
■■ Medical
Social Services
DOUBLE H RANCH
Year-round fun and emotional support
provided free of charge to children
6–16 dealing with critical illnesses.
97 Hidden Valley Road
Lake Luzerne, NY 12846
518-696-5676
www.doublehranch.org
■■ Support
Groups
DREAM FOUNDATION, THE
A nonprofit foundation that helps make
dreams come true for adults facing
life-threatening illnesses.
1528 Chapala Street, Suite 304
Santa Barbara, CA 93101
805-564-2131
www.dreamfoundation.org
32
ENCORE – GREENWICH, CT YWCA
Information and informal peer support,
as well as pool and floor exercises, to
help women recovering from breast
surgery maintain a positive self-image.
259 E. Putnam Ave.
Greenwich, CT 06830
203-869-6591, ext. 131
www.ywcagreenwich.org
ENTRE NOUS MASTECTOMY
BOUTIQUE
Breast prostheses and fittings,
undergarments, bathing suits, bras,
turbans and hats.
359 E. Main Street
Mount Kisco, NY 10549
914-241-0308
EPIC – ELDERLY
PHARMACEUTICAL INSURANCE
COVERAGE
A New York State-sponsored
prescription plan for senior citizens
who need help paying for medicine.
800-332-3742 (Toll-Free)
www.health.ny.gov/health_care/epic/
[email protected]
ESPECIALLY YOURS
Website with wigs and hairpieces
designed especially for women of
color.
P.O. Box 105
South Easton, MA 02375
800-952-5926 (Toll-Free)
www.especiallyyours.com
EXPANDED IN-HOME SERVICES
FOR THE ELDERLY (EISEP)
A New York State program that assists
people, aged 60 and older, who are not
eligible for Medicaid and who need
at-home help with everyday tasks and
activities.
914-813-6442 (Westchester Program)
seniorcitizens.westchestergov.com
(Click on the Caregiving link)
■■ Ancillary
Services
■■ Fees
Based on Patient’s Ability to
Pay (Sliding Scale)
■■ Non-Medical
■■ Respite
In-Home Services
Care
FAMILY SERVICES OF
WESTCHESTER
Support groups and counseling.
One Gateway Plaza, 4th Floor
Port Chester, NY 10573
914-937-2320
www.fsw.org
Branch Offices:
Mount Vernon 914-668-9124
Pelham 914-738-1728
Sleepy Hollow 914-631-2022
Yonkers 914-964-6767
White Plains 914-948-8004
FAMILY SERVICE SOCIETY OF
YONKERS
Home care organization serving
Yonkers and the surrounding region.
Also provides guardianship services
for individuals who have been deemed
914-777-2777
unable to make decisions in their own
best interest concerning their personal
care and/or finances.
30 South Broadway, 5th Floor
Yonkers, NY 10701
914-963-5118
www.fssy.org
[email protected]
FERTILE ACTION
An organization ensuring that fertile
women touched by cancer can become
mothers through advocacy, education,
support and financial aid programs.
PO Box 3526
Manhattan Beach, CA 90266
877-276-5951 (Toll-Free)
www.fertileaction.org
■■ Fertility
■■ Online
Grant Program
Support Groups
■■ Parenthood After
■■ Treatment
Cancer
Grant Program
■■ Peer-to-Peer
Support
FERTILEHOPE
A national LIVESTRONG initiative
that offers reproductive information,
support with physical and emotional
issues, and hope to cancer patients
whose medical treatments may affect
their fertility.
855-220-7777 (Toll-Free)
www.fertilehope.org
33
FIGHT COLORECTAL CANCER
Education and support including a
webinar series, newsletter and clinical
matching service for people with
colorectal cancer (including cancer of
the colon, rectum, anus and appendix)
as well as for their family, friends and
caregivers.
877-427-2111 (Toll-Free) (Answerline)
866-278-0392 (Toll-Free) (Clinical
Matching Service)
www.fightcolorectalcancer.org
[email protected]
FORDHAM WIGS OF
WESTCHESTER
A very large selection of in-stock
wigs (both human and synthetic
hair), turbans, head coverings and
accessories. Specializes in helping
individuals undergoing chemotherapy.
271 North Avenue, Lobby
914-576-1636
www.wigstudio.com
■■ Appointments
Recommended
■■ Insurance Accepted
Covered)
■■ Private
(If Individual Is
Booths
FOUNDATION FOR WOMEN’S
CANCER
Website offering extensive information
on the cancers that affect women.
230 W. Monroe, Suite 2528
Chicago, IL 60606
34
312-578-1439
800-444-4441 (Toll-Free) (Hotline)
www.foundationforwomenscancer.org
[email protected]
FRIENDS OF DANIELLE, LTD.
Financial support for adults and
children who have experienced a
catastrophic illness.
180 Pennsylvania Avenue
914-699-9775
www.friendsofdanielle.org
[email protected]
FRIENDS OF KAREN
Emotional and financial support
for families of children with lifethreatening illnesses.
118 Titicus Road
North Salem, NY 10560
914-277-4547
www.friendsofkaren.org
■■ Bereavement
Support and Funeral
Arrangements
■■ Case
Management
■■ Child
Care for Patient’s Siblings
■■ Meals/Nutritional Assistance
■■ Multilingual
(Spanish)
■■ Services
■■ Services
for Children with Cancer in
Family
■■ Support
Groups
■■ Transportation
GENENTECH®– PATIENT
ASSISTANCE PROGRAM
Financial help for cancer patients.
877-GENENTECH
(436-3683) (Toll-Free)
866-422-2377 (Toll-Free)
(Patient Assistance)
888-662-6728 (Toll-Free)
(Clinical Trial Hotline)
www.genentech.com
GENENTECH ACCESS TO CARE
FOUNDATION
®
Helps people who do not have a health
care plan or for those who have been
denied coverage for specific cancer
drugs like Tarceva®.
800-530-3083 (Toll-Free)
www.genentech-access.com/patients
GILDA’S CLUB WESTCHESTER
Free, nonprofit support community for
people living with cancer, their families
and friends.
80 Maple Avenue
914-644-8844
www.gildasclubwestchester.org
[email protected]
■■ Arts
and Crafts Programs
■■ Educational
■■ Fitness
■■ Look
Programs
Programs
Good...Feel Better Program
■■ Meditation
■■ Multilingual
914-777-2777
■■ Services
■■ Services
for Children with Cancer in
Family
■■ Social
Events
■■ Support
Groups
■■ Workshops
and Lectures
■■ Yoga
GOOD WISHES SCARVES
A nonprofit that provides a free head
scarf to anyone experiencing hair loss as
a result of an illness or treatment.
888-778-5998 (Toll-Free)
www.goodwishesscarves.org
[email protected]
■■ Made
of Silky, Breathable Material
■■ Various
Patterns and Colors
GREENWICH HOSPITAL AND
HOSPICE
Inpatient hospital care, home and
hospice care, and opportunities for those
diagnosed with cancer, as well as for
their families, friends and caregivers
to share experiences, take part in
educational programs and provide
mutual support.
5 Perryridge Road
Greenwich, CT 06830
203-863-3000
203-863-4750 (Spanish)
www.greenhosp.org
■■ Counseling
■■ Pastoral
Care
■■ Support
Groups
35
GROUP LOOP
Connects teens touched by cancer in a
safe and supportive online community.
888-793-9355 (Toll-Free)
www.grouploop.org
grouploop@cancersupportcommunity.
org
■■ “Re-Mission”
and Podcasts
Cancer Game, Videos
■■ Resources
for Dealing with
Emotional Side Effects of Cancer
GUIDANCE CENTER OF
WESTCHESTER, THE
Various support programs that
promote health and well-being for
people dealing with difficult issues.
256 Washington Street
Mt. Vernon, NY 10553
Locations in Tarrytown and New
Rochelle
914-636-4440
www.theguidancecenter.org
■■ Centers
■■ Early
for College and Careers
Childhood Programs
■■ Individual,
Counseling
■■ Substance
Family and Group
Use Programs
HANGER PROSTHETICS AND
ORTHOTICS
A wide variety of prosthetic and
orthotic products. Locations in the
Bronx, Manhattan and Westchester.
36
914-328-2231
877-4HANGER (Toll-Free)
(877-442-6437) (Toll-Free)
www.hanger.com
[email protected]
HEALTHWELL FOUNDATION, THE
A nonprofit organization that provides
financial assistance to patients who
cannot afford medication and therapy
costs such as copayments, health care
premiums and deductibles.
P.O. Box 4133
Gaithersburg, MD 20885
800-675-8416 (Toll-Free)
www.healthwellfoundation.org
[email protected]
HIP HATS WITH HAIR
Unique “hair hat” wig alternatives
for women and girls.
4707 North Nebraska Avenue
Tampa, FL 33603
877-447-4287 (Toll-Free)
www.hatswithhair.com
[email protected]
■■ Order
Online
HOLE IN THE WALL GANG
CAMP, THE
A nonprofit free-of-charge summer
camp for children with cancer and
other life-threatening illnesses. Yearround programs and activities are
also provided both at the camp and in
communities throughout the country.
565 Ashford Center Road
Ashford, CT 06278
860-429-3444
www.holeinthewallgang.org
[email protected]
HOPE LODGE
(A service of The American Cancer
Society)
Free, temporary housing facilities for
cancer patients who are undergoing
treatment and their families.
Accommodations and eligibility
requirements may vary by location.
800-ACS-2345 (Toll-Free)
(800-227-2345) (Toll-Free)
HOPE SCARVES
A nonprofit organization that allows
cancer survivors to share scarves and
their stories with women facing cancer.
3017 Beals Branch Dr.
Louisville, KY 40206
502-264-3215
www.hopescarves.org
■■ Request
a Scarf at No Charge
Individually, or as a Gift for a
Friend or Family Member
HOSPICE & PALLIATIVE CARE
ASSOCIATION OF NY STATE
Information about end-of-life care.
2 Computer Drive West, Suite 105
Albany, NY 12205
518-446-1483
800-860-9808 (Toll-Free)
www.hpcanys.org
914-777-2777
■■ Hospice
Referral
HOSPICE & PALLIATIVE CARE OF
WESTCHESTER
Comprehensive, compassionate
support and care for the terminally ill.
Medicare and most private insurance
cover hospice. Also offers numerous
professionally led bereavement support
groups for adults grieving the recent
loss of a loved one.
311 North Street, Suite 204
914-682-1484
www.hospiceofwestchester.com
[email protected]
■■ Bereavement
Groups
Services and Support
■■ Counseling
■■ Non-Medical
Treatment Options for
Hospice Patients
HOSPICE CARE IN WESTCHESTER
AND PUTNAM
At-home support and care program
for patients and families dealing with
incurable diseases.
540 White Plains Road, Suite 300
Tarrytown, NY 10591
914-666-4228
www.vnahv.org
[email protected]
Services include but are not
limited to:
■■ Bereavement
Counseling
Services and
37
■■ Home
Health Aides and
Nursing Care
■■ Meals
and Nutritional Counseling
■■ Medical
Equipment and Supplies
■■ Medical
Social Work
■■ Medications
Control
for Pain and Symptom
■■ Physical,
Occupational, Speech and
Respiratory Therapy
■■ Respite
Care
■■ Short-Term
■■ Support
Hospital Care
Groups
HOSPICE JOURNEY
Free personal websites for people
facing terminal illnesses. Allows
patients to connect with family and
friends and give them the latest news.
■■ Retreats
■■ Bereavement
■■ Extensive
Services
Cancer Resources
IMERMAN ANGELS
Provides one-on-one support (on
the phone or in person) for cancer
fighters by connecting them with
cancer survivors.
205 W. Randolph, 19th Floor
Chicago, IL 60606
312-274-5529
877-274-5529 (Toll-Free)
www.imermanangels.org
INTEGRATIVE MEDICINE SERVICE
AT MEMORIAL SLOAN-KETTERING
CANCER CENTER
HUDSON VALLEY CANCER
RESOURCE CENTER
Programs and information designed to
complement mainstream medical care
and address the emotional, social and
spiritual needs of patients and families.
Includes inpatient and outpatient
clinical care, research, education and
training. Hospital patients can receive
these services at no charge.
100 Ward Street, Suite A
Montgomery, NY 12549
845-457-5000
www.hudsonvalleycancer.org
[email protected]
Main Campus
1275 York Avenue
(Between 67th and 68th Streets)
New York, NY 10065
212-639-2000
800-525-2225 (Toll-Free)
(Appointments)
www.mskcc.org
877-365-5533 (Toll-Free)
www.hospicejourney.org
[email protected]
Provides advocacy and support for the
Hudson Valley community of people
living with and affected by cancer.
■■ Support
■■ Camps
38
Groups
IONA MARRIAGE AND FAMILY
THERAPY CENTER
Counseling services as well as
referrals for individuals and families.
Fees based on a sliding scale.
45 St. Paul’s Place
914-633-2074
914-633-2418
■■ Support
Groups
■■ Individual
Therapy
■■ Bereavement
Support
INTERNATIONAL MYELOMA
FOUNDATION
Nonprofit organization dedicated
to improving the quality of life of
myeloma patients and their families.
12650 Riverside Drive, Suite 206
North Hollywood, CA 91607
800-452-2873 (Toll-Free Hotline)
818-487-7455
www.myeloma.org
■■ Clinical
Trial Information
■■ Resources
■■ National
on Treatment Options
Support Group Directory
JANSEN HOSPICE AND
PALLIATIVE CARE
Support and care for patients at home,
in hospitals or in nursing homes
during the last stages of life. A team
of professionals and volunteers assists
individuals with serious health issues
to manage symptoms and promote
quality of life.
914-777-2777
Scarsdale, NY 10583
www.jansenhospice.org
[email protected]
914-787-6158
■■ Complementary
Therapies
■■ Pain
Management/Relief Services
■■ Palliative
Care
■■ Pastoral
Care
■■ Support
Groups
■■ Bereavement
Counseling
JOE’S HOUSE
Directory of places to stay across the
country that give discounts to cancer
877-563-7468 (Toll-Free)
www.joeshouse.org
[email protected]
KEN HAMILTON CAREGIVERS
CENTER
A division of Northern Westchester
Hospital dedicated to supporting
caregivers of the seriously ill.
914-242-8128
KIDNEY CANCER ASSOCIATION
An international organization
providing resources for those who are
affected by kidney cancer.
39
P.O. Box 96503 #38269
New York, NY 10163
646-657-2666 (NYC Office)
800-850-9132 (Toll-Free)
503-215-7921 (Nurse Hotline)
www.kidneycancer.org
[email protected]
■■ Kidney
Cancer Educational
Resources
■■ Medicine
■■ Clinical
■■ Online
Information
Trial Searches
Chat with a Nurse
■■ Cancer
Help for Young Adults and
Children
■■ Multilingual
KIDS CANCER NETWORK
Website with news, resources,
connections and a free newsletter
for both kids with cancer and their
families.
P.O. Box 4545
Santa Barbara, CA 93140
www.kidscancernetwork.org
[email protected]
LAWRENCE HOME CARE OF
WESTCHESTER
Certified, nonprofit home health
agency offering professional
nursing, home health aides, physical,
occupational and speech therapy, and
medical social work.
Scarsdale, NY 10583
914-787-6158
40
www.lawrencehomecare.org
[email protected]
LAWRENCE HOSPITAL CENTER
55 Palmer Avenue
Bronxville, NY 10708
914-787-1000
www.lawrencehealth.org
LAWRENCE HOSPITAL CENTER
CANCER SURVIVORSHIP
PROGRAM
Education and support programs for
people dealing with the emotional,
physical and spiritual aspects of life
after cancer.
55 Palmer Avenue
Bronxville, NY 10708
914-787-4115
LEGAL SERVICES OF THE
HUDSON VALLEY
Free legal counsel and representation
for low-income individuals to help
protect their basic necessities of life.
90 Maple Avenue
914-949-1305
Yonkers: 914-376-3757
877-LSHV-LAW (Toll-Free)
(877-574-8529) (Toll-Free)
www.lshv.org/
LEUKEMIA & LYMPHOMA SOCIETY
–WESTCHESTER/HUDSON VALLEY
CHAPTER
Information and programs for those
with leukemia, Hodgkin’s and non-
Hodgkin’s lymphoma and myeloma,
as well as for the people and
professionals who care for them.
1311 Mamaroneck Avenue, Suite 330
800-955-4572 (Toll-Free)
914-949-0084
www.lls.org
■■ Multilingual
■■ Patient
■■ Peer
(Spanish)
Education Programs
Support Program
■■ Support
Groups
■■ Videos
and Brochures for Children
with Cancer
LIDDY SHRIVER SARCOMA
INITIATIVE, THE
Provides educational resources and
personal support for everyone dealing
with sarcoma.
17 Bethea Drive
Ossining, New York 10562
914-762-3251
www.sarcomahelp.org
L.I.N.K.S. PARENT-TO-PARENT
TELEPHONE SUPPORT FOR
FAMILIES OF CHILDREN WITH
CANCER
(A program of Westchester Jewish
Community Services)
Matches parents who have children
with cancer to other parents whose
children have had the same kind of
cancer.
914-777-2777
845 N. Broadway
914-761-0600, ext. 308
914-761-5859
■■ Support
Groups
LIVESTRONG EXERCISE PROGRAM
AT THE RYE YMCA
A research-based physical activity and
well-being program designed to help
adult cancer survivors reclaim their
total health.
21 Locust Avenue
Rye, NY 10580
914-967-6363
www.ryeymca.org/livestrong.htm
[email protected]
■■ Free
12-Week Membership to the
YMCA
■■ Full Access
to the Rye YMCA
LIVESTRONG FOUNDATION, THE
cancer patients with insurance
problems, provides information about
cancer treatments and clinical trials,
and offers support services.
2201 East Sixth Street
Austin, Texas 78702
877-236-8820 (Toll-Free)
855-220-7777 (Cancer Support Line)
www.livestrong.org
■■ Cancer
Guidebook and Educational
Resources
■■ Clinical
Trial Search
41
LOCKS OF LOVE
Nonprofit organization providing
hairpieces to financially disadvantaged
children under 21 who suffer from
medical hair loss from any diagnosis.
234 Southern Blvd.
West Palm Beach, FL 33405
888-896-1588 (Toll-Free)
561-833-7332
www.locksoflove.org
[email protected]
LOOK GOOD...FEEL BETTER
Free non-medical, brand-neutral,
national program created to help
cancer patients improve their selfesteem and quality of life. Provides
information and kits, as well as
instructional sessions.
800-395-LOOK (Toll-Free)
(800-395-5665) (Toll-Free)
www.lookgoodfeelbetter.org
■■ Free
Self-Help Kits (Video and Tips
Booklet)
■■ Programs
Teens
■■ Group
for Women, Men and
Programs for Women
■■ Multilingual
(Spanish and Other
■■ One-on-One
Individual Sessions
Languages)
■■ Interactive
Website for Teens:
www.lookgoodfeelbetter.org/2bMe/
people living with or at risk for lung
cancer.
888 16th St., NW, Ste 150
Washington, DC 20006
800-298-2436 (Toll-Free)
www.lungcanceralliance.org
[email protected]
■■ Clinical
Trial Matching Service
■■ Financial
■■ Phone
Resources
Buddy Program
■■ Support
Groups
LUSTGARTEN FOUNDATION, THE
An organization dedicated to
advancing the scientific and medical
research related to the diagnosis,
treatment and cure of pancreatic
cancer by fundraising and public
awareness.
111 Stewart Avenue
Bethpage, New York 11714
866-789-1000 (Toll-Free)
516-803-2304
■■ Clinical
■■ Patient
Trial Matching Service
Information Services
MAKE-A-WISH FOUNDATION
Nonprofit foundation that grants
wishes to children facing lifethreatening diseases and conditions.
Hudson Valley Chapter:
LUNG CANCER ALLIANCE
Support, education and advocacy for
42
832 South Broadway
The Wish House
Tarrytown, NY 10591
914-478-9474
800-722-9474 (Toll-Free)
www.wish.org
www.hudson.wish.org
[email protected]
MAKING HEADWAY FOUNDATION
Provides care and comfort to children
with brain and spinal cord tumors, as
well as to their families.
115 King Street
Chappaqua, NY 10514
914-238-8384
www.makingheadway.org
[email protected]
■■ Ongoing
■■ Support
Care Program
at the Hospital
MALECARE
A volunteer men’s cancer support
group and an advocacy national
nonprofit organization.
419 Lafayette Street, 2nd Floor
New York, NY 10003
212-673-4920
www.malecare.org
[email protected]
■■ Online
Support Groups
■■ In-Person
Support Groups
■■ Treatment
Discussion and
Information
MARTY LYONS FOUNDATION
Dedicated to fulfilling the wishes of
914-777-2777
children ages 3 to 17 who have been
diagnosed with serious illnesses.
326 West 48th Street
New York, NY 10036
212-977-9474
www.martylyonsfoundation.org
MEALS ON WHEELS/HOME
DELIVERED MEAL PROGRAM
Provides up to two meals per day
(lunch and supper) to Westchester
residents who are housebound because
of illness or other reasons.
914-813-6300 (Main Number)
Local Telephone Numbers: (all 914)
Ardsley 693-8997
Bronxville 787-3027
Dobbs Ferry 693-0787
Chappaqua Eastchester Greenburgh Harrison Hawthorne 238-2093
337-0390
693-8997
835-2000
592-6441
Larchmont/Mamaroneck Town
381-7840
Mount Kisco 666-8931
Mount Vernon Armory Senior Citizens Ctr. 665-2434
Rev. Shelton Doles Comm. Ctr.
665-2447
New Rochelle 576-3865
Peekskill 734-4250
Ossining Pelham 762-8953
738-2842
43
Port Chester/Rye/
Rye Brook 939-4975
Sleepy Hollow 366-5109
Scarsdale Somers 723-4342
232-0807
Tarrytown 631-2717
White Plains, Fairview-Greenburgh 946-6878
Valhalla 769-0155
Yorktown Heights 962-7447
Yonkers 963-2460
program that helps with medical
coverage for many people who are
over 65, or for younger people who
are disabled. Patient may have to pay
certain premiums, deductibles or
other costs.
800-Medicare (Toll-Free)
(800-633-4227) (Toll-Free)
www.medicare.gov
MEDICARE RIGHTS CENTER, THE
Nonprofit organization that helps older
www.westchestergov.com/aging/ adults and people with disabilities
NutritionSites.htm
have access to affordable health
www.mowaa.org
care through counseling, advocacy,
educational programs and public
■■ Nutrition Education and Counseling
policy initiatives.
■■ Professionally
Meals
Prepared Nutritious
■■ Special
Dietary Requests Addressed
When Possible
MEDICAID (MA/MEDICAID)
Financial help for people who cannot
afford to pay for all of their medical
care. Most medical assistance in
Westchester County is provided
through Medicaid Managed Care.
Mt. Vernon 914-813-6129
Peekskill 914-862-5173
White Plains 914-995-5888
Yonkers 914-231-2221
800-505-5678 (Toll-Free)
www.socialservices.westchestergov.
com/medical-assistance
MEDICARE
520 Eighth Avenue
North Wing, 3rd Floor
New York, NY 10018
212-869-3850
800-333-4114 (Toll-Free Helpline)
www.medicarerights.org
[email protected]
■■ Biweekly
Medicare
Newsletter about
■■ Multilingual
MEMORIAL SLOAN-KETTERING
AT PHELPS MEMORIAL HOSPITAL
CENTER
Westchester Campus
777 North Broadway
Sleepy Hollow, NY 10591
914-366-0664 (Medical Oncology)
914-366-0702 (Radiation Oncology)
A U.S. Social Security Administration
44
CANCER CENTER
Main Campus
1275 York Avenue
New York, NY 10021
800-525-2225 (Toll-Free)
212-639-2000
www.mskcc.org
SURVIVORSHIP CENTER
Adult and pediatric survivorship
clinics featuring programs on fertility,
nutrition, rehabilitation and a longterm survivor follow-up program.
1275 York Avenue
New York, NY 10065
646-888-4740
MENTAL HEALTH ASSOCIATION
OF WESTCHESTER, THE
Support groups and counseling.
Tarrytown, NY 10591
914-345-5900
Clinics:
Mt. Kisco 914-666-4646
White Plains 914-345-0700 and
914-949-1212
www.mhawestchester.org
■■ Counseling
Services
■■ Hotlines
■■ Multilingual
(Spanish)
■■ Services
in Family
■■ Support
MILES OF HOPE BREAST CANCER
FOUNDATION
Nonprofit foundation dedicated to
providing funds to various support
programs for people in the Hudson
Valley affected by breast cancer.
P.O. Box 405
Lagrangeville, NY 12540
845-264-2005
www.milesofhope.org
■■ College
Scholarships for Graduating
High School Seniors
■■ Complementary
Medicine Resources
■■ Peer-to-Peer
Program for Breast
Cancer Patients
Montefiore Mount Vernon
Hospital
12 N. 7th Avenue
914-664-8000
www.montefiore.org
Montefiore New Rochelle
Hospital
16 Guion Place
914-632-5000
www.montefiore.org
MYLIFELINE
Personal websites for cancer patients
and caregivers that create
an online support community of
Groups
914-777-2777
45
family and friends to promote positive
connections, inspiration and healing.
www.mylifeline.org
[email protected]
MY SECOND HOME
(A service of Family Services of
Westchester)
Intergenerational day care offering
supervision, wellness activities,
personal care, nutrition and
transportation services and day care
for children and elderly people.
95 Radio Circle
Mt. Kisco, NY 10549
914-241-0770
www.fsw.org/our-programs/mysecond-home
■■ Home
Care
■■ Recreational Activities
(Fitness,
Crafts, Cooking, Gardening, etc.)
■■ Respite
Care Resources
■■ Support
Groups
■■ Transportation
(Fee Required)
NATIONAL BRAIN TUMOR
FOUNDATION
National nonprofit organization that
provides information and support to
brain tumor patients, family members
and health care professionals.
55 Chapel Street, Suite 200
Newton, MA 02458
800-934-CURE (Toll-Free)
46
(800-934-2874) (Toll-Free)
617-924-9997
www.braintumor.org
NATIONAL CANCER INSTITUTE
Government-sponsored website
offering information about all types
of cancer, data and statistics, clinical
trial info, treatment information and
more.
BG 9609 MSC 9760
9609 Medical Center Drive
Bethesda, MD 20892-9760
800-4-CANCER (Toll-Free)
(800-422-6237) (Toll-Free)
www.cancer.gov
■■ Multilingual
(Spanish)
■■ Live
Online Assistance (Cancer
Information Service)
NATIONAL CHILDREN’S CANCER
SOCIETY
Nonprofit organization dedicated to
improving the lives of children with
cancer.
One South Memorial Drive, Suite 800
St. Louis, MO 63102
314-241-1600
www.thenccs.org
■■ Beyond
the Cure Survivorship
Program
■■ Parent
Resources
■■ Scholarship
Programs
NATIONAL COALITION FOR
CANCER SURVIVORSHIP (NCCS)
Information and support to cancer
patients and their families. Helps
advocate for insurance, legal and
employment rights. Offers “The
Cancer Survivor Toolbox,” a free
audio program that helps cancer
patients cope with their illness.
1010 Wayne Avenue
Suite 770
Silver Spring, MD 20910
877-NCCS-YES (Toll-Free)
(877-622-7937) (Toll-Free)
301-650-9127
www.canceradvocacy.org
[email protected]
■■ Multilingual
(Spanish)
NATIONAL HOSPICE AND
PALLIATIVE CARE ORGANIZATION
Information and referrals for
terminally ill people and their families.
1731 King Street, Suite 100
Alexandria, VA 22314
800-658-8898 (Toll-Free)
800-646-6460 (Toll-Free Solutions
Center)
703-837-1500
www.nhpco.org
[email protected]
■■ Multilingual
■■ Physician
Referral
NATIONAL LGBT CANCER
NETWORK
914-777-2777
Education and advocacy for lesbian,
gay, bisexual and transgender people
affected by cancer.
136 West 16 St., #1E
New York, NY 10011
[email protected]
212-675-2633
NATIONAL LYMPHEDEMA
NETWORK, THE
Nonprofit organization providing
education and guidance on
management, treatment and risk
reduction practices to lymphedema
patients and the general public.
116 New Montgomery Street,
Suite 235
San Francisco, CA 94105
415-908-3681
800-541-3259 (Toll-Free)
www.lymphnet.org
NATIONAL OVARIAN CANCER
COALITION
Information, education and links to
resources.
888-OVARIAN (Toll-Free Info Line)
(888-682-7426) (Toll-Free Info Line)
631-672-2077 (Long Island Chapter)
www.ovarian.org
[email protected]
NATIONAL PATIENT TRAVEL
CENTER, THE
Information about patient
transportation and referrals to other
help services in the national charitable
medical transportation network.
47
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455
800-296-1217 (Toll-Free National
Patient Travel Helpline)
www.patienttravel.org
[email protected]
■■ Long
Distance Air and Ground
Transportation
■■ Resources
on Discounted and
Charitable Airline Tickets
■■ Special-Lift
and Child-Lift Programs
NATIONAL PROSTATE CANCER
COALITION
Advocacy organization dedicated to
supporting those affected by prostate
cancer.
212-673-4920
www.newyorkprostate.org
[email protected]
NORDSTROM IN-STORE BREAST
PROSTHESIS PROGRAM
A complimentary in-store service
for women who have undergone
mastectomies, lumpectomies or
reconstructive breast surgery.
135 Westchester Avenue
914-946-1122
■■ Accepts
Medicare and Other
Insurance
■■ Appointments
Needed
10250 Constellation Blvd., Suite 2320
Los Angeles, California 90067
877-NASPCC-8 (Toll-Free)
(877-627-7228) (Toll-Free)
www.naspcc.org
[email protected]
NORTHERN WESTCHESTER
HOSPITAL CENTER
NEEDYMEDS
OLEY FOUNDATION
A website offering information
on financial assistance for
pharmaceuticals.
www.needymeds.com
NEW YORK STATE PROSTATE
CANCER COALITION
A website providing a New York
State listing of many prostate cancer
support groups and other educational
resources.
48
914-666-1200
Free information and support about
tube-fed nutrition at home.
214 Hun Memorial, MC-28
Albany Medical Center
Albany, NY 12208
800-776-OLEY (Toll-Free)
(800-776-6539) (Toll-Free)
www.oley.org
■■ Telephone
Support
ONCOCHAT
Online global support community
for people who have been affected by
cancer.
www.oncochat.org
ONCOLINK
(Of the Abramson Cancer Center of
the University of Pennsylvania)
Website with various specific cancer
resources and information about all
stages of the disease.
www.oncolink.org
PACE WOMEN’S JUSTICE CENTER
Free legal assistance with living wills,
health care proxies, Social Security,
estate planning and other issues.
78 North Broadway
White Plains, New York 10603
914-287-0739 (Helpline)
www.law.pace.edu/wjc
PAIN AND PALLIATIVE CARE
PROGRAM, THE
Administered through Memorial SloanKettering Cancer Center, this program
offers pain control clinics specifically
for cancer patients 65 years old and
older. Patients must be referred by
their oncologist or primary physician.
1275 York Avenue
New York, NY 10021
646-888-4741
www.mskcc.org/pain
914-777-2777
PANCREATIC CANCER NETWORK
A nonprofit patient-based advocacy
foundation dedicated to advancing
research, supporting patients and
creating hope for those affected by
pancreatic cancer.
1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
877-272-6226 (Toll-Free)
310-725-0025
www.pancan.org
[email protected]
■■ Community
Outreach Programs
■■ Patient
and Liaison Services (PALS)
(One-to-One Support)
■■ Free
Educational Packets
PARTNERSHIP FOR PRESCRIPTION
ASSISTANCE
Helps qualified patients who do not
have prescription drug coverage to
get necessary medicines for free or at
discounted prices.
888-4PPA-NOW (Toll-Free)
(888-477-2669) (Toll-Free)
www.pparx.org
PATHWAYS TO CARE
(A program of Westchester Jewish
Community Services)
Offers individual and family
counseling, homecare assistance and
supportive connections within a Jewish
context to those facing terminal illness.
49
845 North Broadway
White Plains, New York 10603
914-761-0600
www.wjcs.com
■■ Support
and Care Management
■■ End-of-Life
■■ Spiritual
Care
Counseling
■■ Bereavement
and Chronic Illness
Support Groups
■■ Grief
Counseling and Psychotherapy
PATIENT ACCESS NETWORK
FOUNDATION
Financial assistance and hope to
people with life-threatening illnesses
who cannot afford breakthrough
medical care and treatments.
866-316-PANF (Toll-Free Helpline)
(866-316-7263) (Toll-Free Helpline)
www.panfoundation.org
■■ Copayment Assistance
Specific Cancers
Resources
Programs for
■■ Online Application
■■ Support
Resources
PATIENT ADVOCATE FOUNDATION
Helps patients solve problems with
insurance companies, employers and
creditors that may have come about
because of their chronic or lifethreatening illness.
800-532-5274 (Toll-Free)
www.patientadvocate.org
[email protected]
■■ Case
Management Assistance
■■ Multilingual
PATIENT SERVICES
INCORPORATED (PSI)
patients who need financial assistance.
P.O. Box 5930
Midlothian, VA 23112
800-366-7741 (Toll-Free)
www.uneedpsi.org
[email protected]
■■ Assists
with Medicare Part D
Co-insurance
■■ Helps
with Advocacy for Social
Security Disability
■■ Provides
Co-payment Assistance
PEDIATRIC BRAIN TUMOR
FOUNDATION
A nonprofit organization that aims to
find a cure for pediatric brain tumors
and to support families and patients
affected by these types of cancer.
302 Ridgefield Ct.
Asheville, NC 28806
828-665-6891
800-253-6530 (Toll-Free)
www.curethekids.org
[email protected]
421 Butler Farm Road
Hampton, VA 23666
50
■■ Online
Resource Library
■■ Scholarship
Program for Students
PHELPS HOSPICE
At-home hospice care for terminally ill
701 North Broadway
914-366-3325
www.phelpshospital.org/clinicalservices/hospice
■■ Children’s
Care
■■ Multilingual
■■ Pain
■■ Support
Groups
PHELPS MEMORIAL HOSPITAL
CENTER
701 North Broadway
914-366-3000
www.phelpshospital.org
PROJECT TIME OUT
Companion/sitting and medical
transport service for limited-income
seniors.
845 North Broadway, Suite 2
White Plains, NY 10603-2427
914-761-0600, ext. 344
www.wjcs.com
■■ Multilingual
(Spanish)
■■ Respite
Care Resources
■■ Support
Groups
QUEEN’S WIG
A large variety of human hair and
synthetic wigs and hairpieces.
505 Main Street
914-633-6365
www.westchesterwig.com
RIDECONNECT OF WESTCHESTER
(A program of Family Services of
Westchester)
Nonprofit organization dedicated
to finding rides for older adults,
the disabled and home health
professionals in Westchester.
116 Radio Circle Suite 305
Mt. Kisco, NY 10549
914-242-7433
www.rideconnectwestchester.org
■■ Information
on Other Westchester
Transportation and Referral Services
■■ “The
Weekly Shopper” Bus Services
■■ Volunteer
Driver Program for
Residents of Northern Westchester
ROAD TO RECOVERY
(A service of American Cancer
Society)
Free rides for patients to and from
their medical appointments.
■■ Fees
Based on Patient’s Ability
to Pay
914-777-2777
51
2 Lyon Place
800-227-2345 (Toll-Free)
914-949-4800
RONALD MCDONALD HOUSE
A “home away from home” for
children undergoing cancer treatment
and their families.
405 East 73rd Street
New York, NY 10021
212-639-0100
www.rmh-newy ork.org
(New York City)
www.rmh-ghv.org
■■ Multilingual
■■ Pain
(Spanish and Others)
■■ Referral
Service
■■ Support
Group Referral Service
RX ASSIST
Online resource center with information on patient assistance programs,
as well as practical tools and news for
patients who need help paying for their
medications.
www.rxassist.org
[email protected]
Partner Hospitals:
– Memorial Sloan-Kettering Cancer
Center
– Maria Fareri Children’s Hospital at
Westchester Medical Center Greater
Hudson Valley
80 Woods Road
Valhalla, NY 10595
914-493-6455
■■ Patient Assistance
■■ Sliding
P.O. Box 66536
St. Louis, MO 63166
800-769-3880 (Toll-Free)
www.rxoutreach.org
[email protected]
Scale (No More Than
$15 per night)
ROSARY HILL HOME
Skilled nursing care for terminally ill
cancer patients.
600 Linda Avenue
Hawthorne, NY 10532
914-769-0114
www.rosaryhillhome.org
■■ Hospice
52
Directory
■■ Prescription
Program
Discount Card
RX OUTREACH
A mail order pharmacy providing affordably priced prescription drugs to
those in need.
ST. ANN’S CHURCH
A bereavement support group offered
two times a year (fall and spring for
four weeks each).
854 Midland Avenue
Yonkers, NY 10704
914-965-1555
■■ Support
Groups
ST. JOHN’S RIVERSIDE HOSPITAL
Multiple locations. See below.
www.riversidehealth.org
[email protected]
Andrus Pavilion
967 North Broadway
Yonkers, NY 10701
914-964-4444
ParkCare Pavilion
2 Park Avenue
Yonkers, NY 10703
914-964-7300
St. John’s Riverside Hospital
Dobbs Ferry
128 Ashford Ave
Dobbs Ferry, NY 10522
914-693-0700
ST. JOSEPH’S MEDICAL CENTER
127 South Broadway
Yonkers, NY 10701
914-378-7000
www.saintjosephs.org
SCARSDALE/EDGEMONT FAMILY
COUNSELING SERVICES
Family therapy clinical services.
Outreach programs for the elderly
housebound.
14 Harwood Court
Scarsdale, NY 10583
914-723-3281
914-777-2777
www.sfcsinc.org
[email protected]
■■ Bereavement
■■ Bilingual
■■ Support
Services
(Spanish)
Groups
SHARE (SELF-HELP FOR WOMEN
WITH BREAST OR OVARIAN
CANCER)
Free support and programs for women
with breast or ovarian cancer and their
families and friends.
1501 Broadway
Suite 704A
New York, NY 10036
866-891-2392 (Toll-Free)
212-719-0364
Breast Cancer Hotline: 212-382-2111
Ovarian Cancer Hotline: 212-719-1204
Information in Spanish: 212-719-4454
www.sharecancersupport.org
■■ Educational
Programs
■■ Hotlines
■■ Latina
Share Program
■■ Support
Groups
■■ Wellness
Programs
SHEPHERD’S FLOCK
(Of the Sisters of the Divine
Compassion)
An outreach ministry that serves
the working poor by assisting them
with food, clothing and other basic
necessities.
53
52 North Broadway
914-539-1657
■■ Care
at Home Program
■■ Family
Education and Training
SHOP WELL WITH YOU
SUNSHINE FOUNDATION
A nonprofit organization that helps
female cancer survivors with bodyimage changes.
A nonprofit organization that fulfills
the dreams of seriously ill children
ages 3–18 whose family has financial
strain due to the illness.
P.O. Box 1270
New York, NY 10009
800-799-6790 (Toll-Free)
212-226-0466
www.shopwellwithyou.org
[email protected]
1041 Mill Creek Dr.
Feasterville, PA 19053
215-396-4770
www.sunshinefoundation.org
[email protected]
SKIN CANCER FOUNDATION
SUPPORT CONNECTION
New York, New York 10016
212-725-5176
www.skincancer.org
40 Triangle Center, Suite 100
Yorktown Heights, NY 10598
800-532-4290 (Toll-Free)
914-962-6402
914-962-1836 (Support Hotline)
www.supportconnection.org
[email protected]
An international organization devoted
to education, prevention, early
detection and treatment options for the
skin cancer community.
SKIP (SICK KIDS NEED INVOLVED
PEOPLE)
Assistance for families caring for
seriously ill or disabled children
at home.
60 West 26th Street, Suite 522
New York, NY 10001
212-268-5999
www.skipofny.org
■■ Case
Management
■■ Children
54
with Cancer
Offers free and confidential support
services to people affected by breast
and ovarian cancer.
■■ Breast
and Ovarian Support Groups
■■ 1-to-1
Counseling (on the Phone and
in Person)
■■ Educational
■■ Wellness
Forums
Classes (Yoga, Meditation)
■■ Workshops
on Nutrition and Stress
■■ Support
for Children and Family
Members
■■ Newsletter
TENDER LOVING CARE (TLC)
TIFFANY WIGS
800-850-9445 (Toll-Free)
www.tlcdirect.org
100 Triangle Shopping Center
Yorktown Heights, NY 10598
800-427-WIGS (Toll-Free)
(800-427-9447) (Toll-Free)
914-245-5800
www.tiffanywigs.com
A nonprofit website and catalog of the
American Cancer Society that provides
wigs and other hair loss products and
mastectomy products at affordable
prices.
THRU MY EYES
Free, in-home, clinically guided
videotaping for people with lifethreatening illnesses who want to leave
legacies for loved ones.
P.O. Box 31H
Scarsdale, NY 10583
914-725-1836
www.ThruMyEyes.org
[email protected]
Suppliers and expert fitters of wigs and
hair prosthetics. Participating provider
for most insurance companies.
TRAID-IN EQUIPMENT EXCHANGE
SERVICE
A free New York State program that
connects people who have assistive
devices to give away with people who
are in need of those devices.
800-624-4143 (Toll-Free)
www.ny.gov (Search: TRAID-IN)
THYROID HEAD & NECK CANCER
FOUNDATION
ULMAN CANCER FUND FOR
YOUNG ADULTS, THE
10 Union Square East, Suite 5B
New York, NY 10003
212-844-6832
www.thancfoundation.org
[email protected]
6310 Stevens Forest Road
Columbia, MD 21045
888-393-FUND (Toll-Free)
(888-393-3863) (Toll-Free)
410-964-0202
www.ulmanfund.org
[email protected]
Supports research, community
awareness and education about
thyroid, head and neck cancer
through patient outreach and
support programs.
■■ Support
for People with Oral and
Head and Neck Cancer (SPOHNC)
■■ Patient-to-Patient
Support Groups,
See www.spohnc.org for more info.
914-777-2777
Financial scholarships, as well as free
support programs and resources for
young adults and their families and
friends dealing with cancer.
UNDERNEATH IT ALL
Breast prostheses, surgical bras,
swimwear, wigs and headgear.
55
320 5th Avenue, #1009
New York, NY 10001
212-717-1976
www.underneathitallnyc.com
[email protected]
■■ Medicare,
Medicaid, Blue Cross/
Blue Shield and Aetna Accepted
■■ Searchable
Programs
Database for Counseling
VISITING NURSE ASSOCIATION
OF HUDSON VALLEY
Professional nursing for patients
of all ages.
Corporate Office:
UNITED OSTOMY ASSOCIATIONS
OF AMERICA, INC.
A nonprofit organization with a website
containing extensive information for
ostomy patients. See local chapter
information for support groups
and services.
P.O. Box 512
Northfield, MN 55057
800-826-0826 (Toll-Free)
914-699-8476 (Westchester
Support Groups)
www.ostomy.org
[email protected]
NY Chapter
www.ostomyassocny.org
UNITED WAY OF WESTCHESTER
AND PUTNAM HELPLINE
Free and confidential bi-lingual
information and referral service that
connects people in need with services
that can help.
336 Central Park Avenue
914-997-6700
Dial 211 for a Specialist
www.hudson211.org
www.uwwp.org
[email protected]
56
Tarrytown, NY 10591
914-666-7616
www.vnahv.org
Branch Office:
20 Milltown Road, Suite 101
Brewster, NY 10509
845-278-4068
■■ Home
Health Aides
■■ Hospice
■■ Pain
Care
■■ Physical,
Therapy
Occupational and Speech
■■ Physician
■■ Social
Referral
Work
■■ Support
Groups
■■ Telehealth,
Visits”
“Virtual Home Care
VISITING NURSE SERVICES IN
WESTCHESTER AND PUTNAM
Professional nursing for patients
of all ages.
360 Mamaroneck Avenue
888-FOR-VNSW (Toll-Free)
914-682-1480
www.vns.org
[email protected]
■■ Hospice
www.vitaloptions.org
[email protected]
Referral
■■ Multilingual
■■ Pain
■■ Respite
Care
■■ Support
Groups
VISITING NURSE SERVICE OF
NEW YORK
Professional nursing for patients of
all ages. Serves all New York City
boroughs as well as Westchester,
Nassau and other locations.
800-675-0391 (Toll-Free)
www.vnsny.org
■■ Skilled
Nursing
■■ Physical
■■ Stroke
Therapy
Care
■■ End-of-Life
■■ Senior
■■ Grief
Care
Care
Support
VITAL OPTIONS INTERNATIONAL
A nonprofit organization focusing
on cancer communications with the
mission to facilitate a global cancer
dialogue®.
4419 Coldwater Canyon Avenue,
Suite I
Studio City, CA 91604
914-777-2777
■■ Many
Informational Resources
Online
■■ Online
Groups
and Telephone Support
WESTCHESTERGOV.COM
Information on health-related issues
and services, news, activities, financial
assistance and more in Westchester
County.
www.westchestergov.com
WESTCHESTER JEWISH
COMMUNITY SERVICES
A wide variety of community
counseling and support services.
(Also, see L.I.N.K.S. – Parentto-Parent Telephone Support for
Families of Children with Cancer, and
Westchester Self-Help Clearing House
– Support Group Referral.)
845 North Broadway
914-761-0600
www.wjcs.com
[email protected]
■■ Counseling
for Patients and Families
■■ End-of-Life
Care and Bereavement
Center
■■ Personal
Systems
■■ Support
Emergency Response
Groups
57
WESTCHESTER MEDICAL CENTER
100 Woods Road
Valhalla, NY 10595
914-493-7000
877-962-3627 (Toll-Free)
(Physician Info)
www.westchestermedicalcenter.com
WESTCHESTER SELF-HELP
CLEARING HOUSE
Referrals to specific cancer support
groups for patients and their families.
845 North Broadway
914-761-0600, ext. 308
WESTFAIR RIDES
Community-based, volunteer
transportation services for older
adults (age 60+) and people with
vision impairments who reside in
Westchester County.
487 East Main Street, #218
914-764-3533
www.westfairrides.org
[email protected]
WHAT MATTERS NOW
A nonprofit organization that provides
free personal websites to those affected
by serious illnesses so they can share
information about their condition.
20660 Stevens Creek Blvd., #320
Cupertino, CA 95014
877-365-5533 (Toll-Free)
58
www.whatmattersnow.org
[email protected]
WHITE PLAINS HOSPITAL CENTER
41 East Post Road
914-681-0600
Cancer Program: 914-681-2701
www.wphospital.org
WHITE PLAINS HOSPITAL
SENIOR SERVICES
A variety of support groups and
services including respite care, for
elderly patients and their loved ones.
69 East Post Road
914-681-1249
www.wphospital.org
■■ Caregiver
Support Group
■■ Health Access
■■ Mall
Walkers
■■ Nursing
Home Placement
■■ Outpatient
Services
■■ Respite
Care Resources
■■ Support
Group Referrals
■■ Telephone
■■ Voice
Reassurance
Care
WIG EXCHANGE, THE
Nonprofit organization that lends
high-quality, gently used wigs to
women going through chemotherapy.
A nominal fee to cover cleaning is
requested when the wig is returned.
914-412-4884
www.thewigexchange.org
[email protected]
ZERO: THE END TO PROSTATE
CANCER
An organization dedicated to reducing
prostate cancer deaths through
research funding and awareness
programs.
515 King Street, Suite 420
Alexandria, VA 22314
202-463-9455
www.zerocancer.org
[email protected]
914-777-2777
59
GLOSSARY
Adenocarcinoma
(ad-du-no-car-ci-noma) A type
of cancer that develops in a gland
forming tissue.
Advanced Cancer
A general description often used to
refer to cancer that has spread from
its starting point to other areas in
the body.
Atypical
(ay-tip-ik-al) In a pathology report,
atypical is used to describe something
that is abnormal or unusual. Something
that is atypical can be the result of
inflammation or infection.
Benign
(bih-nine) Without cancer. Often
used to describe a tumor that is noncancerous.
Bilateral
(by-lat-er-al) On or within both sides
of the body.
Bereavement
(burr-reeve-ment) The time spent
grieving (feeling sad about or
mourning) a loss. Bereavement periods
can last anywhere from days to years.
60
Bone Scan
A way of viewing the bones to
determine abnormalities such as cancer
and learn important information
about it.
Brain Scan
A test that allows doctors to view the
structure of the brain and detect any
abnormalities.
Carcinogen
(car-sin-o-gen) A substance that causes
cancer.
Carcinoma
(car-sin-oh-ma) A type of cancer
that begins in the lining layers of cells.
Most cancers are carcinomas.
CAT Scan
(cat skan) A painless medical
procedure that takes a large number
of x-rays from different angles to
create a more complete picture of
the inside of the body.
Chemotherapy
(kee-mo-ther-a-pee) Treatment
with drugs that destroy cancer cells.
Chemotherapy is usually given by a
needle inserted into the vein (called
an IV drip) though some may be
given by mouth (orally). Most
chemotherapy treatments take place
over several months and may continue
even after the patient is in remission so
that any cancer cells that have
scattered throughout the body are also
destroyed.
Genetic Testing
(gen-et-ik test-ing) Tests performed to
see if certain genes or gene changes
have been inherited, which may make
a person more likely to develop
certain types of cancer.
Clinical trials
(clin-icul tri-yuls) Tests of drugs
or treatments before the government
approves them. The purpose of clinical
trials is to see if the drugs have the
effect they are supposed to, and are
safe. Clinical trials also help the drug
makers identify the proper dose to
give, and find out if the drugs have
side effects.
Health Care Agent
A person (usually a family member or
close friend) who is allowed, by law,
to make medical decisions on behalf
of a patient who cannot make those
decisions on his or her own.
Comorbidity
(co-more-bid-i-tee) An additional
disease or illness that a patient gets
along with a pre-existing disease like
cancer.
Diagnosis
(dy-ag-no-sis) A decision, made by
doctors, often with the help of tests,
of exactly what a patient’s disease is,
or what the symptoms indicate. Once
a diagnosis is made, the doctor can
then prescribe medicine or treatments.
Genetic Counseling
(gen-et-ik koun-sel-ing) Advice and
information given to people who
are at higher risk for certain types
of cancer because of family history
or genetic makeup.
914-777-2777
Health Care Proxy Form
(hell-th kare prock-see form) A legal
document that allows one to choose
someone (usually a family member
or close friend) to make medical
decisions on his or her behalf, if he
or she is unable to do so. The proxy
form also allows one to provide clear
instructions about one’s wishes. Health
care proxy forms can be obtained
though many hospitals, hospice and
home care programs. They can also
be downloaded at the New York State
Department of Health website,
www.health.state.ny.us. Cancer
Support Team can also provide
you with a proxy form.
High Risk
A phrase used to describe an increased
likelihood that a person could develop
a certain type of cancer, or have a past
cancer return.
61
Hospice
(hoss-pis) An organization that
provides special treatment to people
who are close to the end of their lives.
Hospice care may be offered in a
patient’s home, at a hospital or at a
special facility such as a nursing
home. Services can include pain
management (making the pain
less severe), care and assistance
with personal needs as well as with
medications, medical supplies and
equipment, and with the emotional,
psychological and spiritual aspects
of dying.
Imaging
(im-ih-jing) Using sophisticated
(usually computerized) equipment to
create a picture of a part of the body
in order to make a diagnosis. Some
imaging techniques are mammograms,
sonograms, PET scans and MRIs.
Infuse
(inn-fuze) To put a liquid into a vein.
For example, chemotherapy drugs can
be infused through an IV (intravenous)
drip.
Invasive Cancer
(in-vay-siv kan-ser) Cancer that has
spread from its original location to
other normal tissues.
Leukemia
(loo-kee-mee-ya) Cancer that affects
the blood or bone marrow. There are
many different kinds of leukemia.
62
Lymphatic System
(lim-fa-tic sis-tim) A system in the
body that helps people fight infection.
Cancer of the lymphatic system is
called lymphoma.
Lymphedema
(lim-fa-dee-ma) A buildup of fluid,
which causes swelling in various
tissues of the body.
Malignant
(ma-lig-nent) Cancerous, or not
benign. When a tumor is called
malignant, it means that the tumor
has cancerous cells.
Mammogram
(mam-o-gram) An image of the
breast created by an x-ray.
Mastectomy
(ma-stek-toe-me) Surgical removal
of the breast.
Medicaid
(med-i-cade) Also known as
medical assistance (MA). MA/
Medicaid is a government program
that helps with medical coverage for
people who have limited income.
Medicare
(med-i-kare) A program from the
U.S. Social Security Administration
that helps with medical coverage for
people who are over 65, or younger
people who are disabled.
Metastasize
(me-tas-ta-size) When cancer cells
spread from one part of the body
to another.
MRI
(Magnetic Resonance Imaging) MRIs
are medical tests that use magnetism,
radio waves and a computer to provide
detailed images of what is going on
inside the body.
Mutation
(mew-tay-shun) A change in the DNA
of a gene or chromosome of a cell that
occurs normally but can also lead to
cancer in some individuals.
Needle Biopsy
(nee-duhl by-op-see) A procedure
where a sample of fluid, tissue or cells
is removed with a needle to check for
signs of cancer and possible changes in
the disease.
Oncologist
(on-ca-lo-gist) A doctor who
specializes in the treatment of cancer.
There are different kinds of oncologists
including medical oncologists,
radiation oncologists and surgical
oncologists.
Oncology
(on-ca-lo-gee) The practice of treating
cancer.
Palliative care
(pal-li-a-tiv care) Care that is focused
on giving physical comfort or pain
914-777-2777
relief to the patient, rather than trying
to cure the disease.
Pathologist
(path-a-lo-gist) A doctor who studies
abnormal cells and tissues under a
microscope in order to detect diseases.
Pathology
(path-a-lo-gee) The study of disease.
Pediatric
(peed-ee-at-trick) About children.
PET Scan
(pet skan) A diagnostic test that
shows a sectional view of the body,
or part of the body, created by
positron-emission tomography –
a nuclear medical imaging technique.
Portocath or Port
(por-toe-cath) A thin, flexible tube
surgically implanted under the skin
and connected to a vein, that makes
it easier to administer chemotherapy
drugs.
Prognosis
(prog-no-sis) A prediction of a
disease’s outcome. In other words,
what is likely to happen to the patient.
Prosthesis
(pros-thee-sis) An artificial device
created to replace a part of the body
that has been removed by surgery or
as the result of an accident or wound.
Some examples of prosthetic devices
are artificial arms, legs and breasts.
63
Radiology
(raid-ee-ol-o-gee) The area of
medicine that uses radiation therapy
to diagnose and treat disease.
Sonogram
(son-e-gram) An image of a body
part created by sound waves.
(See Ultrasound.)
Radiation Therapy
(raid-ee-ay-shun ther-a-pee) A
procedure that uses high-energy
radiation, like x-rays, to kill cancer
cells and reduce tumor size.
Staging
A system that describes how much
cancer a patient has and how far it has
spread in the body. Staging can also
help medical professionals decide what
kind of treatment to use.
Relapse
(ree-laps) When the symptoms of
a disease return.
Remission
(ree-mish-in) The period of time
during which a patient with cancer,
or other disease, stops showing
signs or symptoms of that disease.
Respite Service
(ress-pit service) Temporary relief for
the caregivers of patients.
Sarcoma
(sar-coma) Cancer of the connective
tissue. Connective tissue surrounds
other tissues and organs of the body.
Examples include bone, cartilage,
tendons and ligaments.
Side Effects
Problems that are caused by medicines
or medical treatments. Some side
effects can be treated to make them
easier to deal with.
64
Symptom
(simp-tum) A sign that a person may
have a certain disease. For example,
pain, fever, sore throat, unexplained
bruises, lumps, unusual discharge
or a persistent cough may be among
the symptoms that require medical
attention.
Toll-Free Telephone Numbers
In addition to 800 numbers, other
toll-free numbers begin with 866,
877, 888, 855 and 844.
Tumor
(too-mur) A lump of body tissue that
is abnormal, and can grow. Tumors can
be malignant (cancerous) or benign
(without cancer).
Ultrasound
(ull-tra-sow-nd) A medical test that
uses the echoes of sound waves to
create a “picture” of internal body
parts.
NOTES & PHONE NUMBERS
914-777-2777
65
66
914-777-2777
n
Cancer Support Team
2900 Westchester Ave., Suite 103
Purchase, NY 10577
914.777.2777
Life Lines is a publication of
Cancer Support Team, a nonprofit
organization that provides free
support, including nursing, social
work and other services, to cancer
For information, please call us
at 914.777.2777.
Life Lines
A resource for
cancer patients
& their families

English Version - Cancer Support Team

Transcription

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