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LIFE
Autumn Edition 2009
LIFE
Queensland
QUEENSLAND
Brissie to the Bay
Introducing Facebook
Portrait of Posterity
Work of Aart
Lynette Walks Again
Events
MS Readathon
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
5
6
IN THIS ISSUE...
Multiple Sclerosis Society of Queensland
CEO’s Message
Catherine’s Story
Our New Website
Life at Annerley Update
Feature Articles
MS Readathon 30th Birthday
Fatigue Research
MS Services
Services to
support you
& taking control
7
8
11
Notice of AGM
12
ABN 56 731 473 412
Phone: 07 3840 0888
Locked Bag 370 Coorparoo DC QLD 4151
Email: [email protected]
Brissie to the Bay
Introducing Facebook
Portrait of Posterity
Work of Aart
Lynette Walks Again
Events
www.msaustralia.org.au/qld
LIFE
QUEENSLAND
MS Life
How a young mum won’t let MS hold her back
EMPLOYMENT AND MS
MS AWARENESS WEEK
MS AND SES
VIRAL MS CAMPAIGN
pg. 8
See how Queensland
took part in World MS Day
celebrations this year
Read about the lip smacking
campaign that had everyone
talking about MS
PwMS Josie Montano helps
during Queensland’s floods
and cyclones
Learn what Mayor of Ipswich
Paul Pisasale feels about
employment and MS
pg. 8
Nominate your
MS Hero
Fax: 07 3840 0813
Spring Edition 2009
Autumn Edition 2009
pg. 12
Working with
MS Workshops
pg. 15
QUEENSLAND
LIFE Queensland
Autumn 2010
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
8
Multiple Sclerosis Society of Queensland
ABN 56 731 473 412
Phone: 07 3840 0888
Email: [email protected]
Employment
Power
LOUISA ON A MISSION
“We Have MS,
But It Doesn’t Have Us!”
Locked Bag 370 Coorparoo DC QLD 4151
www.msaustralia.org.au/qld
QUEENSLAND
MS Life
How a young mum won’t let MS hold her back
EMPLOYMENT AND MS
MS AWARENESS WEEK
MS AND SES
VIRAL MS CAMPAIGN
pg. 8
See how Queensland
took part in World MS Day
celebrations this year
Read about the lip smacking
campaign that had everyone
talking about MS
PwMS Josie Montano helps
during Queensland’s floods
and cyclones
Learn what Mayor of Ipswich
Paul Pisasale feels about
employment and MS
pg. 8
Nominate your
MS Hero
Fax: 07 3840 0813
LIFE
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Bjai^eaZHXaZgdh^hhigjX`#L^i]^cbdci]hd[]Zg[V^gniVaZlZYY^c\!H]VgdclVhan^c\^c]dhe^iVajcVWaZ
idbdkZ[gdbi]ZcZX`Ydlc#
2
3
3
4
6
8
9
10
9
12
Lisa & Sandy tell...
286 Gladstone Road Dutton Park QLD 4102
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Beea_d]7jB_\[J^hek]^:_\\[h[dj;o[i
pg. 12
Working with
MS Workshops
pg. 15
One man’s struggle Living Positively
against the odds
with MS
LIFE
MS Australia – QLD
QUEENSLAND
Autumn 2011
Giving life back
worldMSday
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MS CLINIC
CONVERSATIONS
Australian of the
Year
In depth answers to the most
frequently asked MS questions
Ambassador, National Panel Horse Judge
and person with MS
WORLD MS DAY
GET PHYSICAL
BRISSIE TO THE BAY
McKINNON HOUSE
How you can help the global
campaign on employment
and MS
The link between exercise
and quality of life for people
with MS
Brisbane’s biggest charity
ride celebrates 20 years and
its biggest ever event
A new era of respite care in
an idyllic setting on the Gold
Coast
Find out how you can take part
Life at Annerley
The official launch
Summer Edition 2009
LIFE
MS Australia – QLD
Spring 2011
Giving life back
QUEENSLAND
26 MAY 2010
MS CLINIC
CONVERSATIONS
ORAL TREATMENT
JOINS PBS
TREVOR FARRELL:
GIVING LIFE BACK
Q&A WITH
MAYOR PAUL PISASALE
Gilenya® is the first oral
treatment for relapsing
We celebrate the end of an
era as Executive Director
Trevor Farrell prepares to
retire after nearly 30 years
Meet one of the most
inspiring people living with
MS in Queensland, Mayor of
Ipswich Paul Pisasale
remitting MS to become
available on the PBS
Winter Edition 2009
LIFE
QUEENSLAND
us together!
MS Australia – QLD
Kate finds her
dream job
CCSVI DEBATE
GIVING LIFE BACK
FOR THE CAUSE
PwMSQ
Why MS organisations are
proceeding with caution on
new treatments
The ambitious program
to provide integrated and
dignified care
Meet the Queenslanders
supporting MS research and
regional services
A new framework to expand
and strengthen the MS
support group network
MS Life
BRISSIE TO THE BAY
McKINNON HOUSE
Brisbane’s biggest charity
ride celebrates 20 years and
its biggest ever event
A new era of respite care in
an idyllic setting on the Gold
Coast
Life at Annerley
The official launch
Summer Edition 2009
QUEENSLAND
I am 41 now, lived with MS for over 12 years
and I am aware of the realities of this condition,
understanding that the time may come when it
could worsen. Maybe through diligent management,
it won’t. I am praying that it won’t.
When life hands you a bag of lemons – you simply
go make lemonade!”
B_l_d] M_j^ CI
3P]PUN>P[O4:
MS Life
Life at Annerley....
COMPLETED!
MS gene
discovery
BREAKTHROUGH
MS RESEARCH
ORAL TREATMENT
JOINS PBS
TREVOR FARRELL:
GIVING LIFE BACK
Q&A WITH
MAYOR PAUL PISASALE
Scientists have identified
the major common genetic
variants that contribute to
the cause of MS
Gilenya® is the first oral
treatment for relapsing
We celebrate the end of an
era as Executive Director
Trevor Farrell prepares to
retire after nearly 30 years
Meet one of the most
inspiring people living with
MS in Queensland, Mayor of
Ipswich Paul Pisasale
remitting MS to become
available on the PBS
Winter Edition 2009
LIFE
QUEENSLAND
Giving back independence and dignity
MS brought
us together!
Kate finds her
dream job
CCSVI DEBATE
GIVING LIFE BACK
FOR THE CAUSE
PwMSQ
Why MS organisations are
proceeding with caution on
new treatments
The ambitious program
to provide integrated and
dignified care
Meet the Queenslanders
supporting MS research and
regional services
A new framework to expand
and strengthen the MS
support group network
BOB AND KAREN’S LOVE STORY
MS Life
MS Australia – QLD
MS Life
MS Australia – QLD
Winter 2010
Summer 2011
WHAT A YEAR IT
HAS BEEN FOR MS
WORLDWIDE
Vitamin D
The First Official
Her Excellency Ms Penelope Wensley AO
LIFE
Autumn Edition 2009
LIFE
Queensland
QUEENSLAND
6
7
Events
An 11 year old’s idea...
MS Readathon
New Record for
5
Work of Aart
MOONLIGHT WALK
Over 1300 people take a stroll
through Brisbane to raise
money for MS
A GLOBAL MOVEMENT
P3
How the world united with
a common goal: to raise
awareness of MS
COOLING REBATE
P5
State Government introduces
a new electricity rebate for
low-income Queenslanders
with multiple sclerosis
FEATURE STORY
P10
Debbie Smart was diagnosed
with MS, but it didn’t stop her
from moving to Africa to help
vulnerable children
MSLIFE. MS Life
RESEARCH NEWS
Our New MS
Ambassadors
MS Research Australia
provides you with the latest
updates on MS research
MCKINNON
HOUSE
FOR RESPITE p.6
8
12
3
4
“We Have MS,
But It Doesn’t Have Us!”
MS Life
6
7
Events
Employment
Power
LOUISA ON A MISSION
How a young mum won’t let MS hold her back
pg. 8
pg. 8
Nominate your
MS Hero
pg. 12
Working with
MS Workshops
pg. 15
EMPLOYMENT AND MS
MS AWARENESS WEEK
MS AND SES
See how Queensland
took part in World MS Day
celebrations this year
Read about the lip smacking
campaign that had everyone
talking about MS
PwMS Josie Montano helps
during Queensland’s floods
and cyclones
QUEENSLAND
LIFE Queensland
Autumn 2010
MS Readathon
New Record for
8
12
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
“We Have MS,
But It Doesn’t Have Us!”
MS Life
MS Awareness Week 26 May - 4 June
MS CLINIC
CONVERSATIONS
Jenni
Australian of the
Year
In depth answers to the most
frequently asked MS questions
Ambassador, National Panel Horse Judge
and person with MS
LIFE
QUEENSLAND
WORLD MS DAY
GET PHYSICAL
BRISSIE TO THE BAY
McKINNON HOUSE
How you can help the global
campaign on employment
and MS
The link between exercise
and quality of life for people
with MS
Brisbane’s biggest charity
ride celebrates 20 years and
its biggest ever event
A new era of respite care in
an idyllic setting on the Gold
Coast
Life at Annerley
The official launch
Jonathan Loraine and Bruce Milligan
MS Life
Summer Edition 2009
LIFE
MS Australia – QLD
Spring 2011
Giving life back
QUEENSLAND
Summer edition
2009
pg. 8
pg. 8
Nominate your
MS Hero
pg. 12
Working with
MS Workshops
pg. 15
MS gene
discovery
Phone: 07 3840 0888
Fax:
07 3840 0813
Email: [email protected]
www.msaustralia.org.au/qld
BREAKTHROUGH
MS RESEARCH
ORAL TREATMENT
JOINS PBS
TREVOR FARRELL:
GIVING LIFE BACK
Q&A WITH
MAYOR PAUL PISASALE
Gilenya® is the first oral
treatment for relapsing
We celebrate the end of an
era as Executive Director
Trevor Farrell prepares to
retire after nearly 30 years
Meet one of the most
inspiring people living with
MS in Queensland, Mayor of
Ipswich Paul Pisasale
remitting MS to become
available on the PBS
Winter Edition 2009
LIFE
us together!
LIFE
QUEENSLAND
WORLD MS DAY
GET PHYSICAL
BRISSIE TO THE BAY
McKINNON HOUSE
How you can help the global
campaign on employment
and MS
The link between exercise
and quality of life for people
with MS
Brisbane’s biggest charity
ride celebrates 20 years and
its biggest ever event
A new era of respite care in
an idyllic setting on the Gold
Coast
Kate finds her
dream job
GIVING LIFE BACK
FOR THE CAUSE
PwMSQ
The ambitious program
to provide integrated and
dignified care
Meet the Queenslanders
supporting MS research and
regional services
A new framework to expand
and strengthen the MS
support group network
MS Life
VIRAL MS CAMPAIGN
Life at Annerley
The official launch
Summer Edition 2009
LIFE
MS Australia – QLD
Spring 2011
Giving life back
Multiple Sclerosis Society of Queensland
286 Gladstone Road Dutton Park QLD 4102
Locked Bag 370 Coorparoo DC QLD 4151
ABN 56 731 473 412
QUEENSLAND
Phone: 07 3840 0888
Fax:
07 3840 0813
Email: [email protected]
www.msaustralia.org.au/qld
I look at MS as a rewarding
challenge and not a disability. It
is an acceptance of whatever
cards are dealt to you in this
life. It is your choice on how you
are going to manage that hand.
I guess I look at life through
different eyes these days and
tend to live in the moment.
I have managed this
Just before Sophia’s fifth birthday
condition through positive
(she is 10 now), my Mum asked
Sharon and Sophia Ball with
thinking, meditation, pilates,
her what her three birthday
their puppy Millie
swimming, diet and an
wishes were. She stated that
amazing amount of love and
she “would LOVE a violin, a
friendship. I had been totally drug free for 7 years
poodle puppy…but most of all Grandma I would
opting for natural therapies. However after much
love a cure for MS and that Mummy’s legs would
resistance, in 2001, I went on injection treatment
work properly again”. She received the violin
which can lessen the severity of relapse.
and recently Millie the poochon puppy, and is still
waiting for the gift of a cure.
I was totally needle phobic and now I inject myself
daily: I am up to about 2000 injections so far! I have
I am 41 now, lived with MS for over 12 years
learnt to walk from scratch about 16 times and have
and I am aware of the realities of this condition,
been blind twice.
understanding that the time may come when it
could worsen. Maybe through diligent management,
MS has been a gift to me as it has given me a
it won’t. I am praying that it won’t.
sense of urgency about life, encouraging me not to
procrastinate about what I would like to do one day.
When life hands you a bag of lemons – you simply
I definitely do not want pity…there are many people
go make lemonade!”
B_l_d] M_j^ CI
3P]PUN>P[O4:
MS Life
QUEENSLAND
MS Australia – QLD
MS gene
discovery
BREAKTHROUGH
MS RESEARCH
ORAL TREATMENT
JOINS PBS
TREVOR FARRELL:
GIVING LIFE BACK
Q&A WITH
MAYOR PAUL PISASALE
Scientists have identified
the major common genetic
variants that contribute to
the cause of MS
Gilenya® is the first oral
treatment for relapsing
We celebrate the end of an
era as Executive Director
Trevor Farrell prepares to
retire after nearly 30 years
Meet one of the most
inspiring people living with
MS in Queensland, Mayor of
Ipswich Paul Pisasale
remitting MS to become
available on the PBS
Winter Edition 2009
MS Australia – QLD
Winter 2010
Summer 2011
Giving life back
A YEAR OF
EMPLOYMENT
AND MS
MS Australia – QLD
Spring 2010
Questions
about MS?
We’ve got the answers
you’re looking for
Life at Annerley....
COMPLETED!
LIFE AT ANNERLEY...
MS SOCIETY OF QLD PURCHASES PARTIALLY
COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
who are worse off. I love my life
and I look forward to everything
that life offers.
Then without announcement,
I can be back as the resident
celebrity in hospital learning
to walk again.
LIFE
Giving back independence and dignity
MS brought
us together!
Kate finds her
dream job
CCSVI DEBATE
GIVING LIFE BACK
FOR THE CAUSE
PwMSQ
Why MS organisations are
proceeding with caution on
new treatments
The ambitious program
to provide integrated and
dignified care
Meet the Queenslanders
supporting MS research and
regional services
A new framework to expand
and strengthen the MS
support group network
BOB AND KAREN’S LOVE STORY
MS Life
MS Life
h us
t
i
w
p
i
h
s
er
Giving life back
A YEAR OF
EMPLOYMENT
AND MS
WHAT A YEAR IT
HAS BEEN FOR MS
WORLDWIDE
Learn what Mayor of Ipswich
Paul Pisasale feels about
employment and MS
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Bjai^eaZHXaZgdh^hhigjX`#L^i]^cbdci]hd[]Zg[V^gniVaZlZYY^c\!H]VgdclVhan^c\^c]dhe^iVajcVWaZ
idbdkZ[gdbi]ZcZX`Ydlc#
“MS has been very
challenging. Not one to do
things by halves, I will set off
hiking the snowfields in NZ,
snorkelling with sharks
and turtles in Port Douglas,
and cruising the Coast on a
Harley…as a passenger.
Jonathan Loraine and Bruce Milligan
MS Life
Summer edition
2009
BOB AND KAREN’S LOVE STORY
MS Life
Australian of the
Year
In depth answers to the most
frequently asked MS questions
Ambassador, National Panel Horse Judge
and person with MS
Find out how you can take part
MS Awareness Week 26 May - 4 June
MS CLINIC
CONVERSATIONS
Jenni
CEO’s Desk
2
Life Options
3
Ian’s Story
4
In Memory of John
5
Reading for the Family 6
Storming Parliament
8
Events
9
Research Breakthrough 10
MS Book Reviews
12
CCSVI DEBATE
MS AND SES
PwMS Josie Montano helps
during Queensland’s floods
and cyclones
BH6jhigVa^VXZaZWgViZh*%nZVghd[ZmXZei^dcVahZgk^XZidi]ZcVi^dc^c'%%+
Beea_d]7jB_\[J^hek]^:_\\[h[dj;o[i
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l^i]BHÄVcY]dlBH]Vh^che^gZY]Zgida^kZa^[Zidi]Z[jaa#
MS Australia – QLD
Why MS organisations are
proceeding with caution on
new treatments
MS AWARENESS WEEK
Read about the lip smacking
campaign that had everyone
talking about MS
LIFE Queensland
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Spring 2010
Giving back independence and dignity
MS brought
EMPLOYMENT AND MS
See how Queensland
took part in World MS Day
celebrations this year
Autumn 2010
Giving life back
>ci]ZnZVghh^cXZ!H]Vgdc]VhZcYjgZYcjbZgdjhhZg^djhBHViiVX`h!Wjih]ZÉhcdiVWdjiidaZi]Zg
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Questions
about MS?
Scientists have identified
the major common genetic
variants that contribute to
the cause of MS
MS Australia – QLD
26 MAY 2010
26 MAY 2010
Storming Parliament House for MS
Life at Annerley....
COMPLETED!
LIFE AT ANNERLEY...
Multiple Sclerosis Society of Queensland
286 Gladstone Road Dutton Park QLD 4102
Locked Bag 370 Coorparoo DC QLD 4151
ABN 56 731 473 412
B_l_d] M_j^ CI
3P]PUN>P[O4:
MS Life
P15
MS Research Australia
provides you with the latest
updates on MS research
One man’s struggle Living Positively
against the odds
with MS
LIFE
QUEENSLAND
JOIN THE GLOBAL MOVEMENT!
Activities happening all
worldMSday
around the world!
2nd Annual MS National
Advocates Conference
We’ve got the answers
you’re looking for
CEO’s Desk
2
Life Options
3
Ian’s Story
4
In Memory of John
5
Reading for the Family 6
Storming Parliament
8
Events
9
Research Breakthrough 10
MS Book Reviews
12
MS SOCIETY OF QLD PURCHASES PARTIALLY
COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
I look at MS as a rewarding
challenge and not a disability. It
is an acceptance of whatever
cards are dealt to you in this
life. It is your choice on how you
are going to manage that hand.
I guess I look at life through
different eyes these days and
tend to live in the moment.
Debbie Smart was diagnosed
with MS, but it didn’t stop her
from moving to Africa to help
vulnerable children
RESEARCH NEWS
worldMSday
who are worse off. I love my life
and I look forward to everything
that life offers.
I have managed this
Just before Sophia’s fifth birthday
condition through positive
(she is 10 now), my Mum asked
Sharon and Sophia Ball with
thinking, meditation, pilates,
her what her three birthday
their puppy Millie
swimming, diet and an
wishes were. She stated that
amazing amount of love and
she “would LOVE a violin, a
friendship. I had been totally drug free for 7 years
poodle puppy…but most of all Grandma I would
opting for natural therapies. However after much
love a cure for MS and that Mummy’s legs would
resistance, in 2001, I went on injection treatment
work properly again”. She received the violin
which can lessen the severity of relapse.
and recently Millie the poochon puppy, and is still
waiting for the gift of a cure.
I was totally needle phobic and now I inject myself
daily: I am up to about 2000 injections so far! I have
I am 41 now, lived with MS for over 12 years
learnt to walk from scratch about 16 times and have
and I am aware of the realities of this condition,
been blind twice.
understanding that the time may come when it
could worsen. Maybe through diligent management,
MS has been a gift to me as it has given me a
it won’t. I am praying that it won’t.
sense of urgency about life, encouraging me not to
procrastinate about what I would like to do one day.
When life hands you a bag of lemons – you simply
I definitely do not want pity…there are many people
go make lemonade!”
P10
Employment
Power
LOUISA ON A MISSION
>ci]^hZmXZgei[gdb]ZgheZZX]idi]Zeg^bVgnhX]ddahijYZcih!H]VgdcZmeaV^chl]Vi^iÉha^`Zida^kZ
l^i]BHÄVcY]dlBH]Vh^che^gZY]Zgida^kZa^[Zidi]Z[jaa#
Then without announcement,
I can be back as the resident
celebrity in hospital learning
to walk again.
State Government introduces
a new electricity rebate for
low-income Queenslanders
with multiple sclerosis
FEATURE STORY
Winter 2011
How a young mum won’t let MS hold her back
MS Australia – QLD
Autumn 2011
Giving life back
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heZX^VaegZhZciVi^dcidi]ZhX]ddaVhhZbWanidZcXdjgV\Zdi]Zghid_d^c^ci]ZfjZhiidÈgZVY[dgVgZVhdcÉ#
“MS has been very
challenging. Not one to do
things by halves, I will set off
hiking the snowfields in NZ,
snorkelling with sharks
and turtles in Port Douglas,
and cruising the Coast on a
Harley…as a passenger.
P5
AUTUMN 2012
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NZVg*hijYZciVi6h]\gdkZHiViZHX]dda!idZcXdjgV\Z]Zg[ZaadlhijYZcihideVgi^X^eViZ^ci]ZBH
GZVYVi]dcVcY]ZaegV^hZ[jcYhidhjeedgigZhZVgX]^cidVXjgZ[dgBjai^eaZHXaZgdh^h#
Find out how you can take part
How the world united with
a common goal: to raise
awareness of MS
COOLING REBATE
MSLIFE. MS Life
26 MAY 2010
26 MAY 2010
Storming Parliament House for MS
P3
2
3
3
4
6
8
9
10
Lisa & Sandy tell...
QUEENSLAND
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idbdkZ[gdbi]ZcZX`Ydlc#
worldMSday
JOIN THE GLOBAL MOVEMENT!
Activities happening all
worldMSday
around the world!
2nd Annual MS National
Advocates Conference
A GLOBAL MOVEMENT
9
11
Notice of AGM
ABN 56 731 473 412
Phone: 07 3840 0888 Fax: 07 3840 0813
Email: [email protected] www.msaustralia.org.au/qld
LIFE
BH6jhigVa^VXZaZWgViZh*%nZVghd[ZmXZei^dcVahZgk^XZidi]ZcVi^dc^c'%%+
Beea_d]7jB_\[J^hek]^:_\\[h[dj;o[i
MOONLIGHT WALK
Over 1300 people take a stroll
through Brisbane to raise
money for MS
10
Ambassadors Needed
brissie to the bay
Multiple Sclerosis Society of Queensland
286 Gladstone Road Dutton Park QLD 4102
Locked Bag 370 Coorparoo DC QLD 4151
Spring Edition 2009
KdajbZ(!6j\jhi'%%+
Giving life back
LET’S CRUISE
Helen Emery takes on
the high seas in style with
husband Graham
How you can
help spread
the word
about MS
this May
IN THIS ISSUE...
CEO’s Message
Catherine’s Story
Our New Website
Life at Annerley Update
Feature Articles
MS Readathon 30th Birthday
Fatigue Research
MS Services
Services to
support you
& taking control
3800 CYCLIST PEDAL FOR A CURE!
VIRAL MS CAMPAIGN
Learn what Mayor of Ipswich
Paul Pisasale feels about
employment and MS
One man’s struggle Living Positively
against the odds
with MS
LIFE
MS Australia – QLD
Autumn 2011
5
Work of Aart
Lynette Walks Again
TABLET TALK
A look at new oral treatments
for MS that offer more
options
AWARENESS
MONTH
THIS MAY
2
Brissie to the Bay
Introducing Facebook
COMEBACK KID
Geoff Huegill lends his
support to MS, fresh from
taking gold in Delhi
MS
Giving life back
THIS ISSUE
CEO’s Desk
Portrait of Posterity
Giving life back
QUEENSLAND
Volume 3 Spring Edition, September 2008
An 11 year old’s idea...
Lisa & Sandy tell...
QUEENSLAND
Autumn Edition 2009
LIFE
Queensland
9
11
Notice of AGM
ABN 56 731 473 412
Phone: 07 3840 0888 Fax: 07 3840 0813
Email: [email protected] www.msaustralia.org.au/qld
LIFE
Her Excellency Ms Penelope Wensley AO
LIFE
MS Australia – QLD
Winter 2011
2
3
3
4
6
8
9
10
10
Ambassadors Needed
brissie to the bay
Spring Edition 2009
OUR PATRON
PREPARING
FOR THE
SUMMER HEAT p.7
Debbie
strives
despite MS
Lisa’s story of
motherhood and MS
Educate, Motivate
& Advocate
LEIZA’S
STORYp.3
P15
AUTUMN 2012
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
IN THIS ISSUE...
CEO’s Message
Catherine’s Story
Our New Website
Life at Annerley Update
Feature Articles
MS Readathon 30th Birthday
Fatigue Research
MS Services
Services to
support you
& taking control
3800 CYCLIST PEDAL FOR A CURE!
Multiple Sclerosis Society of Queensland
286 Gladstone Road Dutton Park QLD 4102
Locked Bag 370 Coorparoo DC QLD 4151
LET’S CRUISE
Helen Emery takes on
the high seas in style with
husband Graham
How you can
help spread
the word
about MS
this May
2
3
4
Portrait of Posterity
Lynette Walks Again
TABLET TALK
A look at new oral treatments
for MS that offer more
options
AWARENESS
MONTH
THIS MAY
THIS ISSUE
Brissie to the Bay
Introducing Facebook
COMEBACK KID
Geoff Huegill lends his
support to MS, fresh from
taking gold in Delhi
MS
Giving life back
Volume 3 Spring Edition, September 2008
CEO’s Desk
Debbie
strives
despite MS
Lisa’s story of
motherhood and MS
Educate, Motivate
& Advocate
OUR PATRON
PREPARING
FOR THE
SUMMER HEAT p.7
are you getting enough?
World MS Day
Our New MS
Ambassadors
MCKINNON
HOUSE
FOR RESPITE p.6
Vitamin D
The First Official
are you getting enough?
World MS Day
LEIZA’S
STORYp.3
QUEENSLAND
MS Australia – QLD
MS Australia – QLD
Winter 2010
Summer 2011
WHAT A YEAR IT
HAS BEEN FOR MS
WORLDWIDE
The First Official
World MS Day
Vitamin D
Educate, Motivate
& Advocate
MCKINNON
HOUSE
FOR RESPITE p.6
PREPARING
FOR THE
SUMMER HEAT p.7
OUR PATRON
The First Official
are you getting enough?
Our New MS
Ambassadors
LEIZA’S
STORYp.3
Her Excellency Ms Penelope Wensley AO
World MS Day
Debbie
strives
despite MS
Lisa’s story of
motherhood and MS
COMEBACK KID
TABLET TALK
LET’S CRUISE
MOONLIGHT WALK
Geoff Huegill lends his
support to MS, fresh from
taking gold in Delhi
A look at new oral treatments
for MS that offer more
options
Helen Emery takes on
the high seas in style with
husband Graham
Over 1300 people take a stroll
through Brisbane to raise
money for MS
A GLOBAL MOVEMENT
P3
How the world united with
a common goal: to raise
awareness of MS
COOLING REBATE
P5
State Government introduces
a new electricity rebate for
low-income Queenslanders
with multiple sclerosis
FEATURE STORY
P10
Debbie Smart was diagnosed
with MS, but it didn’t stop her
from moving to Africa to help
vulnerable children
RESEARCH NEWS
P15
MS Research Australia
provides you with the latest
updates on MS research
Vitamin D
are you getting enough?
Our New MS
Ambassadors
Educate, Motivate
& Advocate
LEIZA’S
STORYp.3
MCKINNON
HOUSE
FOR RESPITE p.6
PREPARING
FOR THE
SUMMER HEAT p.7
OUR PATRON
Her Excellency Ms Penelope Wensley AO
Debbie
strives
despite MS
Lisa’s story of
motherhood and MS
COMEBACK KID
TABLET TALK
LET’S CRUISE
MOONLIGHT WALK
Geoff Huegill lends his
support to MS, fresh from
taking gold in Delhi
A look at new oral treatments
for MS that offer more
options
Helen Emery takes on
the high seas in style with
husband Graham
Over 1300 people take a stroll
through Brisbane to raise
money for MS
A GLOBAL MOVEMENT
How the world united with
a common goal: to raise
awareness of MS
P3
COOLING REBATE
Are you a member with MS Queensland?
Membership with us, which is just $33 a year, assists us in providing
information and education about MS and leading edge MS research to find a
cure for multiple sclerosis.
This includes the information you receive through publications such as MS
Life, MS Insight and our Online Resource Centre on our website.
We regularly receive very positive feedback about the information content
of our flagship client-focused magazine, MS Life. We are committed to
continuing to provide this valuable information resource to anyone
who has an interest in MS and as such we do not restrict its
circulation to MS Queensland members only. But this comes
at a substantial cost and we need your support.
have
your say
So if you value the publications and services MS
Queensland provides then please show your support
Help support
by joining or renewing your membership with MS
Queensland today. For a fee of just $33 you can
MS Queensland
join us for a year, or you might consider becoming
and our good
a Life Member for just $330 to avoid worrying about
paying your membership ever again! The strength of MS
work!
Queensland comes from our active and committed
members and we would welcome your
contribution to our vital work.
As a financial member you’ll also have the opportunity to have
your say on the exciting future plans of MS Queensland at the
Annual General Meeting (AGM) in November.
To become a member, simply complete the form overleaf and
return it to MS Queensland as soon as possible. On behalf
of all Queenslanders living with MS, we look forward to
your membership support for a world free from MS
and its devastating impact.
P5
State Government introduces
a new electricity rebate for
low-income Queenslanders
with multiple sclerosis
memb
Lincoln Hopper, CEO
MS Australia – QLD
Spring 2010
Questions
about MS?
We’ve got the answers
you’re looking for
Giving life back
A YEAR OF
EMPLOYMENT
AND MS
WHAT A YEAR IT
HAS BEEN FOR MS
WORLDWIDE
I look at MS as a rewarding
challenge and not a disability. It
is an acceptance of whatever
cards are dealt to you in this
life. It is your choice on how you
are going to manage that hand.
I guess I look at life through
different eyes these days and
tend to live in the moment.
I have managed this
Just before Sophia’s fifth birthday
condition through positive
(she is 10 now), my Mum asked
Sharon and Sophia Ball with
thinking, meditation, pilates,
her what her three birthday
their puppy Millie
swimming, diet and an
wishes were. She stated that
amazing amount of love and
she “would LOVE a violin, a
friendship. I had been totally drug free for 7 years
poodle puppy…but most of all Grandma I would
opting for natural therapies. However after much
love a cure for MS and that Mummy’s legs would
resistance, in 2001, I went on injection treatment
work properly again”. She received the violin
which can lessen the severity of relapse.
and recently Millie the poochon puppy, and is still
waiting for the gift of a cure.
I was totally needle phobic and now I inject myself
daily: I am up to about 2000 injections so far! I have
learnt to walk from scratch about 16 times and have
been blind twice.
LIFE
MS Australia – QLD
Giving life back
LIFE AT ANNERLEY...
Phone: 07 3840 0888
Fax:
07 3840 0813
Email: [email protected]
www.msaustralia.org.au/qld
who are worse off. I love my life
and I look forward to everything
that life offers.
Then without announcement,
I can be back as the resident
celebrity in hospital learning
to walk again.
MS has been a gift to me as it has given me a
sense of urgency about life, encouraging me not to
procrastinate about what I would like to do one day.
I definitely do not want pity…there are many people
Spring 2011
MS SOCIETY OF QLD PURCHASES PARTIALLY
COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Multiple Sclerosis Society of Queensland
286 Gladstone Road Dutton Park QLD 4102
Locked Bag 370 Coorparoo DC QLD 4151
ABN 56 731 473 412
“MS has been very
challenging. Not one to do
things by halves, I will set off
hiking the snowfields in NZ,
snorkelling with sharks
and turtles in Port Douglas,
and cruising the Coast on a
Harley…as a passenger.
Jonathan Loraine and Bruce Milligan
MS Life
LIFE
QUEENSLAND
MS Australia – QLD
Winter 2010
Summer 2011
GET PHYSICAL
The link between exercise
and quality of life for people
with MS
Summer edition
2009
BOB AND KAREN’S LOVE STORY
MS Life
WORLD MS DAY
How you can help the global
campaign on employment
and MS
CEO’s Desk
2
Life Options
3
Ian’s Story
4
In Memory of John
5
Reading for the Family 6
Storming Parliament
8
Events
9
Research Breakthrough 10
MS Book Reviews
12
Giving back independence and dignity
MS brought
Australian of the
Year
In depth answers to the most
frequently asked MS questions
Ambassador, National Panel Horse Judge
and person with MS
MS Australia – QLD
Spring 2010
Find out how you can take part
MS Awareness Week 26 May - 4 June
Storming Parliament House for MS
Life at Annerley....
COMPLETED!
MS gene
discovery
BREAKTHROUGH
MS RESEARCH
Scientists have identified
the major common genetic
variants that contribute to
the cause of MS
Giving life back
A YEAR OF
EMPLOYMENT
AND MS
B_l_d] M_j^ CI
3P]PUN>P[O4:
MS Life
JOIN THE GLOBAL MOVEMENT!
Activities happening all
worldMSday
around the world!
2nd Annual MS National
Advocates Conference
Jenni
Questions
about MS?
LIFE AT ANNERLEY...
Phone: 07 3840 0888
Fax:
07 3840 0813
Email: [email protected]
www.msaustralia.org.au/qld
I am 41 now, lived with MS for over 12 years
and I am aware of the realities of this condition,
understanding that the time may come when it
could worsen. Maybe through diligent management,
it won’t. I am praying that it won’t.
When life hands you a bag of lemons – you simply
go make lemonade!”
We’ve got the answers
you’re looking for
CEO’s Desk
2
Life Options
3
Ian’s Story
4
In Memory of John
5
Reading for the Family 6
Storming Parliament
8
Events
9
Research Breakthrough 10
MS Book Reviews
12
MS SOCIETY OF QLD PURCHASES PARTIALLY
COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
I look at MS as a rewarding
challenge and not a disability. It
is an acceptance of whatever
cards are dealt to you in this
life. It is your choice on how you
are going to manage that hand.
I guess I look at life through
different eyes these days and
tend to live in the moment.
I have managed this
Just before Sophia’s fifth birthday
condition through positive
(she is 10 now), my Mum asked
Sharon and Sophia Ball with
thinking, meditation, pilates,
her what her three birthday
their puppy Millie
swimming, diet and an
wishes were. She stated that
amazing amount of love and
she “would LOVE a violin, a
friendship. I had been totally drug free for 7 years
poodle puppy…but most of all Grandma I would
opting for natural therapies. However after much
love a cure for MS and that Mummy’s legs would
resistance, in 2001, I went on injection treatment
work properly again”. She received the violin
which can lessen the severity of relapse.
and recently Millie the poochon puppy, and is still
waiting for the gift of a cure.
I was totally needle phobic and now I inject myself
daily: I am up to about 2000 injections so far! I have
learnt to walk from scratch about 16 times and have
been blind twice.
MS has been a gift to me as it has given me a
sense of urgency about life, encouraging me not to
procrastinate about what I would like to do one day.
I definitely do not want pity…there are many people
Summer edition
2009
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l^i]BHÄVcY]dlBH]Vh^che^gZY]Zgida^kZa^[Zidi]Z[jaa#
who are worse off. I love my life
and I look forward to everything
that life offers.
Then without announcement,
I can be back as the resident
celebrity in hospital learning
to walk again.
Jonathan Loraine and Bruce Milligan
MS Life
LIFE
QUEENSLAND
Multiple Sclerosis Society of Queensland
286 Gladstone Road Dutton Park QLD 4102
Locked Bag 370 Coorparoo DC QLD 4151
ABN 56 731 473 412
“MS has been very
challenging. Not one to do
things by halves, I will set off
hiking the snowfields in NZ,
snorkelling with sharks
and turtles in Port Douglas,
and cruising the Coast on a
Harley…as a passenger.
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Bjai^eaZHXaZgdh^hhigjX`#L^i]^cbdci]hd[]Zg[V^gniVaZlZYY^c\!H]VgdclVhan^c\^c]dhe^iVajcVWaZ
idbdkZ[gdbi]ZcZX`Ydlc#
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BH\Zi^ci]ZlVnd[a^k^c\a^[Zid^ih[jaaZhi#=Zgedh^i^kZdjiadd`]Vh^che^gZY]ZgYVj\]iZgHde]^V!V
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26 MAY 2010
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heZX^VaegZhZciVi^dcidi]ZhX]ddaVhhZbWanidZcXdjgV\Zdi]Zghid_d^c^ci]ZfjZhiidÈgZVY[dgVgZVhdcÉ#
26 MAY 2010
MS Awareness Week 26 May - 4 June
Storming Parliament House for MS
LIFE Queensland
Autumn 2010
Giving life back
worldMSday
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26 MAY 2010
JOIN THE GLOBAL MOVEMENT!
Activities happening all
worldMSday
around the world!
2nd Annual MS National
Advocates Conference
Jenni
MS Australia – QLD
Winter 2011
How you can
help spread
the word
about MS
this May
IN THIS ISSUE...
CEO’s Message
Catherine’s Story
Our New Website
Life at Annerley Update
Feature Articles
MS Readathon 30th Birthday
Fatigue Research
MS Services
Services to
support you
& taking control
7
11
Notice of AGM
Spring Edition 2009
KdajbZ(!6j\jhi'%%+
Giving life back
5
6
AUTUMN 2012
AWARENESS
MONTH
THIS MAY
2
3
4
10
Ambassadors Needed
brissie to the bay
3800 CYCLIST PEDAL FOR A CURE!
One man’s struggle Living Positively
against the odds
with MS
LIFE
MS Australia – QLD
Autumn 2011
Giving life back
MS Readathon
New Record for
MSLIFE. MS Life
MS
Giving life back
THIS ISSUE
CEO’s Desk
An 11 year old’s idea...
“We Have MS,
But It Doesn’t Have Us!”
QUEENSLAND
Volume 3 Spring Edition, September 2008
Employment
Power
LOUISA ON A MISSION
Lisa & Sandy tell...
LIFE
Queensland
2
3
3
4
6
8
9
10
9
10
Ambassadors Needed
brissie to the bay
3800 CYCLIST PEDAL FOR A CURE!
286 Gladstone Road Dutton Park QLD 4102
LIFE
MS Australia – QLD
Winter 2011
How you can
help spread
the word
about MS
this May
2
3
4
AUTUMN 2012
AWARENESS
MONTH
THIS MAY
THIS ISSUE
CEO’s Desk
An 11 year old’s idea...
MSLIFE. MS Life
MS
Giving life back
Volume 3 Spring Edition, September 2008
New Record for
FEATURE STORY
P10
Debbie Smart was diagnosed
with MS, but it didn’t stop her
from moving to Africa to help
vulnerable children
RESEARCH NEWS
P15
MS Research Australia
provides you with the latest
updates on MS research
EWAL
TION/REN
A
IC
L
PP
A
RG.AU
bership
mem
.O
WWW.MSQLD
TO: Hon Secretary
MS Queensland
Locked Bag 370
Coorparoo DC QLD 4151
Application Date: ____ /____ /____
Phone: (07) 3840 0888
Fax: (07) 3840 0813
Email: [email protected]
I wish to submit an Application for Membership of MS Queensland.
I wish to renew my Application for Membership of MS Queensland.
I enclose my subscription for:
Annual Ordinary Membership $33.00 (inc. GST) (1 July – 30 June)
Life Membership $330.00 (inc. GST)
(Life Membership can only be granted following application for Ordinary Membership)
My personal details are as follows:
Full Name.........................................................................................................
DRIVE YOUR
MEMBERSHIP FURTHER
Address............................................................................................................
JOIN ONLINE
........................................................................................................................
Post Code.........................................................................................................
WWW.MSQLD.ORG.AU
Phone No........................................................................................................
Email................................................................................................................
Date of Birth.....................................................................................................
Please indicate your interest in MS QUEENSLAND
I have MS
I just want to support the
A family member has MS MS cause
I know someone with MS Other.........................................
My subscription, as shown below, is enclosed:
Ordinary$............................
Life
$............................
Donation$............................ (All donations $2 and over are tax deductible)
TOTAL$............................
Payment details:
Please make cheques payable to Multiple Sclerosis Society of Queensland
Visa
M/Card
Amex
Diners
OR please charge my
Card No __ __ __ __ / __ __ __ __ / __ __ __ __ / __ __ __ __
Expiry Date__ __ / __ __ Name on card...........................................................
Return this form with your payment to MS Queensland using the enclosed
Reply Paid envelope. Thank you for your support.
Services are delivered to registered clients on the basis of individual assessment and identified needs.
Membership does not automatically entitle you to receive services – people with MS must register as a
client and provide proof of diagnosis. For more information call the Information Line on 1800 177 591.