Spring - Families Helping Families

Transcription

The Capital Area Quarterly
Families Helping Families of Greater Baton Rouge Newsletter
“It’s who we are.” It’s what we do.”
In This Issue:



3rd Annual Active for Autism 5K Run/Walk
FSO (Family Support Organization) launches
RCASD Lunch and Learn with Dr. Hollman



FHFGBR & BREC - Liberty Lagoon

Summer Camps
Workshops + Seminars

Menchie’s and CA Pizza Kitchen
Upcoming Events / Important Dates

Education Station
APRIL — JUNE 2012
SPRING ISSUE
Record Crowd Turns Out to Support 3rd Annual
ACTIVEFORAUTISM Event!
Sandra Trammell, Penni Cedotal, Tanja Foil,
Scott Rogers, Jamie Tindle and Col. Michael D. Edmonson
Our 3rd Annual Active for Autism 5K Run/ 1K Walk and Fun Fest
was held on a picture perfect Saturday morning on March 31, 2012.
Like last year, the event was once again held on the grounds of the
Louisiana State Police Training Academy in Baton Rouge. “Working
hand-in-hand with the Louisiana State Police and the Department of
Public Safety clearly shows our community that we are all in this
together” says Jamie Tindle, Executive Director of Families Helping
Families of Greater Baton Rouge. Having Colonel Michael D.
Edmonson, Superintendent for the LA State Police and Jill Boudreaux,
Undersecretary for the Department of Public Safety as our Honorary
Co-Chairs was an extreme privilege in representing Active for Autism
2012.
THANKS TO YOU this year’s event was a HUGE success! An
estimated record crowd of 6,000 people were in attendance,
including hundred’s for the 5K race. Thanks to everyone’s
generosity, hard work, and volunteerism, we anticipate surpassing
our fundraising goal of $120,000. In addition to a record turn-out,
we were supported by 20 vendor booths providing valuable
information and fun activities for all ages.
The Active for Autism event is the largest yearly fundraiser for the
Breaking News:
Resource Center for Autism Spectrum Disorders,
a program of Families Helping Families of Greater
Baton Rouge. There were also a record number of
corporate sponsors that proudly supported our
event, which included Wal-Mart, OLOL Children’s
Hospital, BlueCross BlueShield of Louisiana, La
Capitol Federal Credit Union, AT&T, Business First
Bank, and Cajun Industries and many others.
Because of YOUR support and generosity, the
Resource Center for Autism Spectrum Disorders
(RCASD) will continue to serve families and
individuals with Autism Spectrum Disorders in
the Greater Baton Rouge area.
Please visit
www.rcasd.org for more exciting and helpful
information.
QUICK HITS...
“OSS-TISM” BY TISH TSE
3
EARLY STEPS/CSHS/
EDUCATION
4-6
CALENDAR OF EVENTS
9-10
FSO/CSOC
1920
PICTURES
2123
The CDC raises the numbers affected by autism to 1 in 88 and 1 in 54 boys.
THE CAPITAL AREA QUARTERLY
APRIL — JUNE 2012
EXECUTIVE DIRECTOR
Jamie S. Tindle
[email protected]
OFFICE MANAGER
Kayley Williams
[email protected]
BOOKKEEPER
Aubrie Ory
[email protected]
CSHS PARENT LIASON
Kay Lewis-Caron, Ability Awareness Coordinator
[email protected]
Our Mission Statement
To provide the individualized services, information,
resources and support needed to positively enhance the
independence, productivity and integration of persons
with disabilities Into the community.
RESOURCE, REFERRAL, & INFORMATION SPECIALIST
Kimberly Brown, Specialist &Lending Library Organizer
[email protected]
Natasha Dumas-Jackson, Specialist & Lending Library Organizer
[email protected]
INCLUSIVE EDUCATION / IEP /TRANSITION
Cynthia Chesterfield, Lead IEP Parent Educator for Inclusive Education
Inclusive Recreation Resource Specialist
[email protected]
Kara Shupe, IEP Parent Educator for Inclusive Education and
Parents Helping Parents Coordinator
[email protected]
EARLYSTEPS
Hona Bea Cavalier, Community Outreach Specialist and
Certified Passenger Safety Technician
[email protected]
RESOURCE CENTER FOR AUTISM SPECTRUM DISORDERS
Penni Cedotal, Autism Resource Specialist/Advocate
[email protected]
Sandra Trammell, Autism Resource Specialist/Advocate
[email protected]
Ursula Brown, Autism Resource Specialist/Advocate
[email protected]
FAMILY SUPPORT ORGANIZATION (FSO) PROGRAM
Derek Edens , Program Director
[email protected]
BOARD OF DIRECTORS
Chairperson
Brian Esteve, Ph.D
Vice Chair
Tanja Foil
Treasurer
Dana Jarreau
Secretary
Juliana Rome
Directors
André Chapoy
Carolyn Clark
Katrina Coots
Carly Dickson
Jason Durham
Kathy Edmonston
Belynda Gauthier
Lyn Hassenboehler
Kasey Henry
Alvin Mack
Thomas Sellars
NEXT BOARD MEETINGS
FULL BOARD MEMBER MEETING
MAY 16TH, 2012
JULY 18TH, 2012
11:30AM - 1:00PM AT FHFGBR OFFICE
PLEASE JOIN US. BOARD MEETINGS ARE OPEN TO THE PUBLIC.
Roselyn Davis, Peer Support Supervisor
[email protected]
Cindy Ardoin, Parent Trainer/Group Facilitator
[email protected]
Becky Decker, Parent Trainer/Group Facilitator
[email protected]
Families Helping Families of Greater
Baton Rouge
2356 Drusilla Lane Baton Rouge,
Louisiana 70809
Michael Mizell, Parent Trainer/Group Facilitator
[email protected]
Ernestine Baskin, Youth Training & Support Specialist
[email protected]
Jasmine Blanks, Youth Training & Support Specialist
[email protected]
Laticia Espinoza, Family & Cultural Support Specialist
[email protected]
Voice: 225-216-7474,
Toll-free: 1-866-216-7474
Fax 225-216-7977 www.fhfgbr.org [email protected]
Find and “Like” Families Helping Families of
Greater Baton Rouge (FHFGBR) and Resource
Center for Autism Spectrum Disorders (RCASD)
on Facebook!
Funding for this publication is provided by the Louisiana Department of Education, Louisiana Developmental Disabilities Council, Capital Area Human Services District, the Office for Citizens
with Developmental Disabilities, the Office of Behavioral Health, Blue Cross Blue Shield LA and the most generous support of families and businesses of our communities .
APRIL — JUNE 2012
“Oss-tism” Through Grayson’s Eyes?
Written by Tish Tse
A few months ago, my husband and I told our son, Grayson, who was diagnosed with autism just after turning 2, about the
upcoming Active for Autism Walk. Every day, with a lot of enthusiasm, he asked “Is the walk tomorrow?!” My answer
was always, “It isn’t tomorrow. It’ll be soon though”. His little brother often echoed my answer with, “No, it’s not. Not
yet!”
When Grayson ran across the walk information in my car while sitting in the carpool line one morning, he said, “What’s
this?” I said, “It’s about the walk”. He looked at me with eyes that said, “I want to know more”. He said, “Information
about the walk?” I said, “Yes, the autism walk.” “Oss-tism?” he said. I explained to him that we would be walking to raise
awareness for autism. Knowing he didn’t know what that meant, I rephrased. I said, “We are walking to tell others about
autism…and to tell them we need their help”. He looked very interested. I said, “Our team is called Geaux Geaux
Grayson. We are walking for you, baby”. He smiled. I didn’t tell him what autism is, and for now, it isn’t important that
he knows. But his smile was proof that he really understood we would be walking for him.
When we went to the pediatrician’s office, he asked the nurse and the doctor if they were “coming to the walk”. He asked
his teacher and his friends at school. He came home saying, “I asked so and so if they were coming to the walk”. His
excitement for the walk was pushing him past his usual social limitations. We were thrilled! Also, he was advocating for
himself without even realizing it. He asked me every day who would be at the walk. I listed everyone on our team, people
he knows in the community, our friends, and everyone else that would be out there with us raising awareness for autism. If
no one else mentioned the upcoming walk, Grayson would talk about it. He like to start the conversation by saying,
“Momma, tell me who’s gonna be at the walk”. He was familiar with the list of names since he heard it so many times.
When I had not yet gotten to a name, he reminded me. I truly believe he had that list memorized. He just loved hearing
the names of everyone we were going to be walking with!
When Grayson saw, Jamie Tindle, the Director of Families Helping Families of Greater Baton Rouge on TV a few days
before the walk, he said, “LOOK! There’s Ms. Jamie!” I knew this year’s walk would be even better than before. Last
year, his little brother, Zander, rode in a stroller. This year, he said he wanted to walk. I was so excited! He too would be
out there advocating for his brother and raising awareness for autism! When Grayson asked him (numerous times a day) if
he would be going to the walk, Zander said, “Yeah, I want to take a walk”. The exchange was so cute and made my heart
so happy.
The night before the walk, I tucked Grayson in first. I told him he needed to get some good sleep so he would wake up
feeling good and have enough energy to walk. I think he was out in less than ten seconds! When I went in Zander’s room
to tuck him in, he said, “Momma, tomorrow is the walk”. I said, “Yes, it is! Are you excited?” He said, “Yeah, we are
walking for Grayson…” I said, “We sure are!” He put his little hand to my face and said, “Momma?” I said, “Yes baby?”
He said, “I want to walk with Grayson. I want to walk next to him.” I said, “He would love to walk with you.” He said, “I
want to walk with Grayson and hold his hand”. With a weak voice and tears in my eyes, I said, “You are so sweet.
Grayson is so lucky to have a brother like you. Good night. I love you”.
As usual, Grayson was slow to wake up. But when I said, “Today’s the walk, Grayson!”, he sat up and had a smile stretched
from ear to ear. Fortunately, I was prepared. I had my camera so I could share this moment with others. (photo below)
The walk was awesome. It was a big day for Grayson, our family, others with Autism,
and their families. There aren’t many activities you can describe as “moving,
inspirational, and so much fun”. The Active for Autism Walk is a one of a kind event
that has become a standard in Baton Rouge. We will be out there walking together
every year, spreading the word about autism and asking others to join us in our fight.
Our family is especially thankful for Jamie Tindle, Families Helping Families of Greater
Baton Rouge, Colonel Mike Edmonson, and the Louisiana State Police. The Resource
Center for Autism Spectrum Disorders went above and beyond. Penni Cedotal and
Sandra Trammell worked so hard. The result was another awesome walk! …... Very proud and thankful mom, Tish Tse.
FHFGBR’s newsletter | Spring Issue
03
APRIL — JUNE 2012
OCDD Updates/ EarlySteps
Community Outreach Specialist
Do you want to know how you can get the
latest information about EarlySteps updates?
Please join us and attend one of our RICC
(Regional Interagency Coordinating) meetings. These meetings
are hosted by the Regional Coordinator and consist of group
membership of family members of children with disabilities, as
well as service providers, community leaders and agency
representatives. Some of their activities ensure that families
are aware of all of the early intervention services and providers
available in the community. EarlySteps serves ages 0-3 years of
age.
If you would like to know more about these meetings or would
like to know about upcoming EarlySteps events please contact
your Regional Community Outreach Specialist.
The next meeting is June 29, 2012 from 1-3pm at the BREC
Park on Independence Blvd. in Baton Rouge, in Room #137.
This month I have the pleasure of announcing that I’m now a
Certified Passenger Safety Technician. Families Helping
Families of Greater Baton Rouge is now a site where you can
come to have your car seat inspected to ensure safety of your
children.
For more information please contact HonaBea Cavalier
@ 225-216-7474 or [email protected]
GET FAMILIAR WITH DISABILITY AND
WAIVER SERVICES
Presentation will share vital information on
Louisiana’s Disability services including:



NOW waiver

Community Choices waiver (previously called
the Elderly and Disabled waiver)




Long Term Care Personal Care services
Children's Choice waiver
Supports waiver
EPSDT PCS services
CAHSD services
TBI and SCI trust fund
Wednesday, April 11
9:30am—12:30pm @Cabella’s
2200 West Cabella’s Parkway,
Gonzales, LA 70737
or
Wednesday, May 9th
9:00am—12:00pm @BREC Location
BREC Independence Park 7500 Independence Room
#137 Baton Rouge, LA 70806
To register contact Kay Lewis-Caron
@ [email protected] or call 225.216.7474
ED-vice from C&K
Got Questions? We can help find the answer. Cynthia Chesterfield and Kara Shupe (C&K) are starting a
new advice column to be published in our quarterly newsletter. We are looking forward to sharing the
information that you need most. While it would be impossible for us to answer each and every question we
will receive, we will do our best to pick the questions that will benefit the greatest amount of parents that
we serve.
*** If you have questions you need answered right away, call us at (225) 216-7474. Do not wait for our
newsletter as we will only select a few questions to answer. Thanks!
Please email your questions to [email protected]
or mail them to:
Kara Shupe c/o FHFGBR
2356 Drusilla Lane
Baton Rouge, LA 70809
04
APRIL — JUNE 2012
EDUCATION STATION
So the long anticipated LEAP test for your child is over or shortly will be. Parents now begin waiting patiently (or
trying their hardest to be patient ) to find out how their child performed. So what do the scores mean? What
happens if your child doesn’t pass LEAP? Read below for the Louisiana State Dept. of Educations answer to these
questions:
What do students need to score to pass the LEAP?
For students to be promoted from the fourth or eighth grades, students must score Basic or higher in either English
or math and Approaching Basic or higher in the other subject.
What happens if students do not pass the LEAP?
If a student does not pass LEAP, he or she may participate in summer remediation and a summer retest in the
subject in which the student scored at the Unsatisfactory and/or Approaching Basic level.
Fourth Grade:
Fourth grade students who do not meet the standard must be provided the opportunity to participate in a Fourth
Grade Transitional Program, which is an opportunity for those students who may benefit from some remedial fourthgrade class work and regular fifth grade course work. If students in transitional programs meet certain criteria they
may be able to advance to the sixth grade. Students who want to participate in the fourth grade transitional program
must score at the Approaching Basic level or above on both the English and math components of the LEAP; meet all
other district requirements for promotion, such as attendance guidelines; and participate in the summer
remediation program and summer LEAP retest. Upon completion of the fourth grade transitional program, these
students may be promoted to the sixth grade if they score a minimum of Basic in either English or math and
Approaching Basic in the other subject AND at least Approaching Basic in both science and social studies on the
fourth grade LEAP, in addition to meeting all other district promotion requirements.
Eighth Grade:
Eighth grade students who do not meet the Basic/Approaching Basic promotional standard to be promoted to the
ninth grade, but score at least Approaching Basic in either English or math may enter high school to pursue a career
diploma if they meet the following requirements:
Attend summer school and take the 8th grade LEAP retest
Achieve a GPA of 1.5 or higher
Meet the minimum attendance requirement for 8th grade
Meet the behavior requirements determined by the district
Be at least 15 years old or turn 15 during the next school year
Students entering the career diploma pathway without passing LEAP must participate in dropout prevention and
monitoring programs, such as JAG or a Graduation Coach Program. All students who pursue a career diploma have
to get written permission from their parent or guardian to participate.
If a student meets these criteria for this waiver and is promoted to high school, the student must also enroll in and
pass a high school remedial course in the Unsatisfactory subject (English or math) before enrolling in or earning
high school credit for that subject.
Additionally, students who have not met the Basic/Approaching Basic promotional standard or the criteria to pursue
a career diploma must repeat the eighth grade. However, students are only required to repeat the 8th grade once
and may advance to high school and enter a program that best suits their academic needs.
05
APRIL — JUNE 2012
Dr. Patrick Schwarz’s
“Adventuresome Behavior”
Solutions Educated and Entertained Attendees
O
n March 1st 98 participants took advantage
of our FREE Parent Conference featuring
Dr. Patrick Schwarz speaking about
behavior challenges. The day began with
jumping up and down and dancing to ensure
everyone was paying attention. The high energy
continued throughout the day as Dr. Schwarz’s
obvious passion to help children with disabilities who
demonstrate
“adventuresome”
behaviors
was
blatantly apparent.
Using children’s passions to encourage learning and redirect less than desirable
behavior was the theme of the day. Participants took part in multiple hands on activities
that left them with techniques to use immediately following the conference. Attendee’s
couldn’t help but feel empowered with the knowledge learned that day and we are sure
the children in our area will benefit greatly from Dr. Schwarz’s visit to Baton Rouge.
We want to thank everyone who attended the conference for their participation. Our
goal is to find information that can benefit not only parents, but the professionals
working with our children as well. The response from attendee’s was overwhelmingly
positive and we are glad Dr. Schwarz was able to teach us new exciting techniques.
This conference is supported under a contract with the Louisiana Department of Education with
funds under Part B of the Individuals with Disabilities Improvement Act of 2004
06
APRIL — JUNE 2012
BRING YOUR
LUNCH & LEARN
SERIES
“AUTISM, SEIZURES & more…”
By Charlotte Hollman, MD
WHEN:
WHERE:
COST:
Wednesday, April 11th, 2012, from Noon—1pm
2356 Drusilla Lane, Baton Rouge, LA 70809
FHFGBR Conference Room
FREE
Contact Sandra Trammell, RCASD - [email protected]
or call 225.216.7474 to register.
PROFILE & RESOURCE
Dr. Charlotte Hollman
Dr. Charlotte Hollman was raised in Baton Rouge and attended
University High School. She completed her medical studies at
LSU-New Orleans, with an internship and residency in
Pediatrics at Baylor College of Medicine in Houston, Texas. Her
Pediatric Neurology Fellowship was completed at the University
of Minnesota. She is board-certified in Pediatrics, Pediatric
Neurology and EEG. After private practice for many years in the
Baton Rouge area, Dr. Hollman joined the Clinic in September,
2000.
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APRIL — JUNE 2012
PHP
parents
helping
parents
MENTOR PARENT TRAINING
If you would like to help another family through the journey of caring for a child
with a disability, please register for this training!
When:
April 28 & June 16, 2012,
10 a.m.— 2 p.m.
Where:
FHFGBR, 2356 Drusilla Lane, Baton Rouge, LA 70809
Contact:
Kara Shupe, 225-216-7474 or [email protected]
* Registration required; ** Lunch will be provided
*** Funding for this program provided by the Louisiana Children’s Trust Fund.
Parents Helping Parents is a program to give direct support to families of children whose parents may need one to one
support from someone who knows how they feel to encourage them to be the best they can be. We are currently
seeking parents/caregivers to train as volunteer mentor parents.
07
APRIL — JUNE 2012
Wednesday, April 11, 2012 09:30 AM—12:30 PM—Get familiar with Disability/Waiver Services. Location: Cabella’s 2200 West
Cabella’s Parkway Gonzales, LA 70737. Contact Kay Lewis at [email protected] or 225.216.7474 for more information.
Wednesday, April 11, 2012 12:00 PM—1:00 PM— Bring you own Lunch, Listen and Learn Series with Dr. Charlotte Hollman
“Autism, Seizures, and More…” Location: FHFGBR Conference Room. Space is limited and registration required! Contact Sandra
Trammell at [email protected] or call 225.216.7474 to register.
Friday, April 13, 2012— (All Day) FHFGBR Fundraiser at Menchie’s Location: Mall of Louisiana 6401 Bluebonnet Blvd.
Baton Rouge, LA 70836. 225.763.6244
Friday, April 13, 2012—IEP Boot Camp FREE Training with LA Parent Training and Info Center with SDE’s FHFGBR. Presenter:
Shanida Mathieu, Education Advocate Location: Ascension Parish Library—Galvez Branch 40300 Highway 42, Prairieville, LA
70769. To register email Cynthia Chesterfield at [email protected] or call 225.216.7474.
Saturday, April 14, 2012 — Aspire 2 Inspire presents Bowling Tournament for Autism In recognizing April as Autism Awareness
Month, Location: Circle Bowl 8878 Florida Blvd, Baton Rouge, LA 70815. Call to pre-register at 225.216.7474
Friday, April 20, 2012 — Diploma Option and Exiting Pathways Workshop from 9am to11am Location: Livonia High School 3118
LA Hwy 78 Livonia, LA 70755. For more info or to register contact Cindy Ardoin at 225.216.7474 or [email protected]
Friday, April 20, 2012—BREC’s Sunshine Social “70s Night” Ages: 18 and older $5 Location: Milton J. Womack Park, 6201
Florida Blvd. 6pm to 9pm. Call 225.926.4659 or email [email protected]
Saturday, April 21, 2012—Sensory Sensitive Cinema at the Rave Cinemas #16 off O’Neal Lane. Location:
16460 Hatters Avenue, Baton Rouge, LA 70816 “Chimpanzee” at 1:30 PM. Feel free to bring in your own
food—the lights will not be completely off and the sound will not be loud. For more info contact Penni
Cedotal at [email protected] or call 225.236.3053.
Monday and Tuesday, April 23rd and 24th, 2012 —(2 Full Days) In recognizing April as Autism Awareness
Month, California Pizza Kitchen “Flavorful FUNdraising event.” Location: Perkins Row 10001 Perkins Rowe
(Across from the movie theater). 20% of your check will be donated to FHFGBR.
Tuesday, April 24, 2012—FREE Online Effective Practices Workgroups by the LASARD Project from 1pm to
2pm. “Facilitating Social Relationships” To register for the FREE online workshop go to: http://
www.hdc.lsuhsc.edu/larard/Workgroupregister.html
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APRIL — JUNE 2012
Saturday, April 28, 2012—The Baton Rouge Autism Speaker Series presenting Dr. Kathleen Quill,
“Social and Communication Intervention for Children with Significant Challenges” 9am to 3pm
Location: Catholic Life Center, Tracy Center Auditorium, 1800 South Acadian Thruway, Baton Rouge,
LA 70808. For more info and to register call 225.924.0298. FREE for families, caregivers, and students
$40/session for professionals requesting CEU’s; to register go to www.juniorleaguebr.org.
Saturday, April 28, 2012—Parent to Parent Training with Kara Shupe. If you want to help other
parents that have similar situations for you, this training is for you. 10am to 2pm Location: 2356
Drusilla Lane, Baton Rouge, LA 70809 at the FHFGBR Conference Room. Registration required and
lunch provided. Contact Kara Shupe at [email protected] or call 225.216.7474.
Wednesday, May 9, 2012—Get Familiar with Disability/Waiver Services. Location: BREC
Independence Park 7500 Independence Blvd. Room #137 Baton Rouge, LA 70806. To register contact
Kay Lewis-Caron at [email protected] or call 225.216.7474.
Thursday May 10, 2012—Sensory Sensitive Cinema the Rave motion cinemas. Location: The Rave
Cinemas #16 O’Neal Lane, Baton Rouge, LA 70817. “Disney’s Chimpanzee” 12:00 PM. Feel free to
bring your own Gluten-free, Casein-free foods. The sound will be kept low and the lights will be
lowered but not off. For more info contact Penni Cedotal at [email protected] or 225.216.7474.
Friday, May 11, 2012— Is Your Child REALLY Learning? Find Out with Progress Monitoring! 10am to 12
pm. Presenter: Shanida Mathieu Education Advocate. Location: Ascension Parish Library —Galvez
Branch 40300 Highway 42 Prairieville, LA 70769. To register email Cynthia Chesterfield at
[email protected] or call 225.216.7474
Friday, May 11, 2012—Coffee Hour with Dr. Steven Felix from 10am to 11am “Obsessions and
Rigidity” Location: Our Lady of the Lake Regional Medical Center’s Pediatric Development and
Therapy Center, 2nd floor Meeting Room.
Saturday, May 12, 2012—Family Fun Luau at the Liberty Lagoon Family Aquatics Center 7pm to
10pm Location: 111 Lobdell Avenue Baton Rouge, LA. $7 per person (Each person must have a
wristband to enter). For more information or to purchase a wristband, call Families Helping Families
at 225.216.7474.
Tuesday, May 15, 2012—FREE Online Effective Practices Workgroup through LASARD. “Using Assistive
Technology” from 3pm to 4pm. Location: Online. To register for the FREE online workshop go to:
http://www.hdc.lsuhsc.edu/lasard/Workgroupregister.html
09
APRIL — JUNE 2012
SUMMERCAMPSUMMERCAMP
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APRIL — JUNE 2012
SUMMERCAMPSUMMERCAMP
MIND Alliance Project in Science, Technology, Engineering, and Mathematics (STEM)
Department of Rehabilitation and Disability Studies
Southern University, Baton Rouge, LA
SUMMER ENRICHMENT INSTITUTE
Unveiling the Opportunities in Science
for High School Students with Disabilities
May 29 – June 8, 2012 (Excluding Weekend)
Purpose: To enhance participation of STUDENTS WITH DISABILITIES in Science, Technology, Engineering, and Mathematics (STEM)
DEADLINE FOR APPLICATION – APRIL 25, 2012
1.
Participate in ACT training – May 29-31, 2012 at SUBR
2.
Participate in a Disability Awareness Day, Study/Social Skills Training, and Field Trip to LATAN –
June 1, 2012 at SUBR
3.
Participate in the Five-Day Immersion Program focusing on Physics, Chemistry, Mathematics, Computer
Science, Biology, and Engineering – June 4-8, 2012 at SUBR
4.
Participate in a Field Trip to J. Stennis Space Center, NASA, MS – June 7, 2012
5.
Participate in a Field Trip to Laser Interferometer Gravitational-Wave Observatory (LIGO), Livingston, LA –
June 8, 2012
6.
Participate in a career assessment and career exploration session – Late Spring, 2012
7.
Participate in the MIND Mentoring and Role Modeling Activities – Fall, 2012
EXAMPLES OF DISABILITY – Asthma, Cancer, Multiple Sclerosis, ALS, Learning Disabilities, Traumatic
Brain Injury, Spinal Cord Injury, Blindness, Deafness, Diabetes Mellitus, Hypertension, Poliomyelitis, Renal
Failure, etc.
STIPEND OF $250 UPON COMPLETION OF THE ABOVE ACTIVITIES BY AUGUST, 2012
Please contact:
Dr. Alo Dutta, Principal Investigator at 225-771-2335 (Phone), [email protected]
Dr. Madan Kundu, Project Director at 225-771-2325 (Phone), [email protected]
Ms. Violet Adams, Graduate Assistant, at 225-771-2411 (Phone), [email protected]
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APRIL — JUNE 2012
N
Louisiana Family to Family
Health Information Center
Upcoming Events!
For Registration forms, email [email protected] or Call 1-800331-5570.
La F2FHIC Conference:
Conference:
“Caring for Children and Youth with Complex Needs and Multiple Diagnoses”
May 9, 2012, Morgan City Municipal Auditorium.
Registration 8:00am; Conference at 9:00am
This conference was created to help parents of children with complex needs and the
professionals who serve them. Presenters will consider the child and family as a whole
when speaking on complex challenges in health, mental health and disability. Parents
and professionals are encouraged to attend. Light breakfast and box lunch included.
There is no fee to attend; however, all attendees must register and space is limited. Only Registrations received before May 2nd will include lunch. A continuing
learning group will be formed from this conference to provide information and support to
families and professionals.
La F2FHIC Leadership Academy:
Academy:
“In Person” Leadership Academy
May 17-18, 2012, North Branch Library, 4130 Park Avenue, Gray, Louisiana
Welcome 9:00-9:30; Academy 9:30am-4:00pm
This Leadership Academy was developed for families of children and youth with any
type of special health care need, mental or behavioral health issues, or other disabilities. Learn how to get the services your child needs! Learn about your rights! Learn
how state and other systems work! Learn how to pass on your knowledge to others!!
Parent of children with special health care needs or disabilities of all types and youth
with special health care needs or disabilities of all types up to age 26 are encouraged to
attend!
La F2FHIC Leadership Academy:
Academy:
“Web Based” Leadership Academy
May 24-25, 2012 9:00am-12:00pm and 1:00pm to 2:00pm
This Leadership Academy is a web-based version of the Academy that will take place
on May 17-18 in Gray, Louisiana. It was also developed for families of children and
youth with any type of special health care need, mental or behavioral health issues, or
other disabilities. Learn how to get the services your child needs! Learn about your
rights! Learn how state and other systems work! Learn how to pass on your Knowledge
to others!! Parent of children with special health care needs or disabilities of all types
and youth with special health care needs or disabilities of all types up to age 26 are encouraged to attend!
To register for any of the above events, email [email protected] to request a registration form
or call 1-800-331-5570.
13
APRIL — JUNE 2012
Join Us Every
Tuesday at
3:30 p.m.
We are an inclusion league of persons with all skill levels. Accommodations are made for wheelchair needs.
We are also eligible for tournaments and Special Olympics competitions.
Circle Bowl
8878 Florida Boulevard
Florida @ Airline Across from Cortana Mall
Cost to Bowl is $7.00
For more information contact:
Penni at 216-7474 or Circle Bowl at 925-5471
Note: Anyone under 18 or with a disability must be accompanied by a responsible adult
14
EVENTS PROMOTION
APRIL — JUNE 2012
15
APRIL — JUNE 2012
Hello LaCAN members!!! My name is Ashley McReynolds. I am your new Region 2 Leader. I
am very excited about the opportunity to advocate for your families. As many of you know,
the 2012 Legislative Session has started. Our region has been assigned the following
weeks for Yellow Shirts at The Capitol:
1. April 9-13
2. Personal Testimony for the Appropriations is April 16 & 17
3. April 30-May 4
I have been instructed to let my members know to be on standby during these weeks. I do
not have specific details such as time, and where to meet, but I will contact you as soon as I
receive this information. If you do not have a yellow shirt, please email me with your shirt
size, and I will get one for you. I look forward to meeting all of you during these upcoming
weeks. Please feel free to call me anytime. My number is 227-715-5740, or you can email me. Thank you!
Ashley McReynolds, LaCAN leader Region 2, 225-715-5740, Email: [email protected]
Coordinated System of Care Capital Area — Community Team
Upcoming Community Team Meetings
All meetings are held on Mondays
1:30 pm meetings: April 16, May 14, June 11 & July 9
6:00 pm meetings: April 30, May 21, June 25 & July 23
WHO is invited to participate:
If you are a family experiencing or have experienced the challenge of appropriate
services to meet the needs of children and youth with severe behavioral and mental
health challenges, you should participate.
If you are an Agency, Provider, Faith-based Community member or school that serves
these families, you should participate.
All meetings are held at Families Helping Families of Greater Baton Rouge
2356 Drusilla Lane, Baton Rouge, LA 70809
For more information call : Derek Edens @ 225.216.7474 or [email protected]
If you are still unable to attend, you may call in and attend via conference call at 1.805.360.1000. When
prompted, enter access Code: 546755#.
*Capital Area Region encompasses the Parishes of East & West Baton Rouge, East and West Feliciana, Ascension, Pointe Coupee and Iberville
16
APRIL — JUNE 2012
Families Helping Families GBR
is a non-profit, family directed
resource center for individuals
with disabilities and their
families. It is a place where
families can go that is directed
and staffed by parents or
family members of children
with disabilities or adults with
disabilities. It is this common
experience that gives Families
Helping Families a very unique
approach to serving families.
Nonprofit organization refers
to an organization that uses
surplus revenues to achieve
its goals rather than to
distribute them as profit or
dividends. States in the United
States defer to the IRS
designation conferred under
United States Internal
Revenue Code Section 501(c)
(3), when the IRS deems an
organization eligible. While
not-for-profit organizations are
permitted to generate surplus
revenues they must be
retained by the organization
for its self-preservation,
expansion, or plans. NPOs
have controlling members or
boards. Many have paid staff
including management, while
others employ unpaid
volunteers and even
executives who work with or
without compensation.
www.fhfgbr.org
MIXIN’ IT UP W/ MENCHIE’S & FHFGBR
FRI
APRIL
13
Mention this ad
at the register.
MALL OF LOUISIANA
6401 BLUEBONNET
225.763.6244
In recognizing April as Autism Awareness Month, proceeds for this fundraiser will support the
Resource Center for Autism Spectrum Disorders, a program of Families helping Families of
greater Baton Rouge.
WHAT ‘S YOUR MIX? WWW.MENCHIES.COM
17
APRIL — JUNE 2012
RESOURCE
Baton Rouge FREE Learning
Disabilities Conference
Saturday, April 21
9:30 am to 3:00 pm
THIS FREE EVENT IS
SPONSORED BY:

Redemptorist Elementary
School
School

3655 St. Gerard Avenue
Families Helping Families of
GBR

CHADD
REGISTRATION is LIMITED

LaBIDA
To register, send an email to

Mire Consulting

Greater Baton Rouge Literacy
Coalition

The Brighton School
Redemptorist Elementary
[email protected]
LIMITED STIPENDS
AVAILABLE
Families Helping Families of Greater Baton
Rouge, in cooperation with Capital Area
Human Services District, Mental Health
Advisory Board is pleased to announce that
we have a limited number of stipends
available for individuals with behavioral
health, mental health and/or addictive
disorder challenges and their family
members to attend conferences focusing on
these issues they are facing. These stipends
can be used to pay for registration fees to
conferences and trainings.
For a stipend application or for more
information, please contact Families Helping
Families of Greater Baton Rouge at (225) 2167474 or 1-866-216-7474.
Register @ WWW.JUNIORLEAGUEBR.ORG
18
APRIL — JUNE 2012
News from the Family Support Organization, a program of Families
Helping Families of Greater Baton Rouge
CSOC off and running
The Coordinated System of Care (CSoC) officially started on March 1st, 2012 in the State of
Louisiana. The CSoC is designed specifically for Louisiana’s at risk children (youth ages 0-21)
with significant behavioral and mental health challenges and/or co-occurring disorders, that
are in or at risk imminent risk of out of home/school placement and/or who are currently
involved in one or more agencies (Office of Juvenile Justice, Dept. of Children and Family
Services, Office of Behavioral Health, Dept. of Education).
Families Helping Families of Greater Baton Rouge plays an important role in CSoC in that we
have been selected as the Family Support Organization (FSO) in Region 2. Some of the many
roles of the FSO are:
1. Attend meetings with the family and assist in helping the family to effectively
contribute to planning and accessing services, including removing barriers to those
services;
2. Assist in describing the program model and provide information as needed to assist
the family;
3. Support and train family members to increase their ability to provide a safe and
supportive environment in the home and community for the child/youth;
4. Assist the family in the acquisition of knowledge and skills necessary to understand
and address the specific needs of the child/youth in relation to their illness and
treatment;
5. Assist the family in understanding various requirements of the CSoC process, such as
the crisis plan and the plan of care process.
6. At this time, each region will support 240 children/youth, which will be the capacity.
Anyone (Parent, School, Court, etc.) can refer a child/youth to the CSoC by contacting
Magellan Health Services at (800) 424-4399. . Magellan will make the ultimate
determination whether or not the child/youth qualifies for the CSOC program.
Magellan will maintain a local office in Baton Rouge at 10000 Perkins Rowe, 5th floor,
Suite 500, Baton Rouge, Louisiana. You can also get more information at their web
address at www.magellanoflouisiana.com.
If you have any questions about the FSO, feel free to contact Derek Edens, Program Director at
[email protected] or by calling 225.216.7474, ext. 209.
19
APRIL — JUNE 2012
FHFGBR welcomes the newest members
to the Family Support Organization
Laticia Espinoza joins the FSO as a Certified Family and Cultural Support Specialist.
Laticia is a single
mother with two wonderful children. One is attending Sherwood Middle and the other attending Cedarcrest
Elementary. Laticia was born and raised in Texas and spent most of her life living in Iowa. She moved to
Louisiana 5 years ago. Laticia is multi-lingual and speaks English, Spanish, some Italian, and some American sign language. Laticia is a strong family advocate and active in her community.
Ernestine Baskin joins the FSO as a Certified Youth Training and Support Specialist. Ernestine is a Native of Baton Rouge, Louisiana. She is the fourth of six children and at the age twelve Ernestine was taken
into foster care along with her two younger siblings. At the age of 18 she graduated from Redemptorist High
School with a 3.5 G.P.A on a 4.0 scale. She is the first of her family to graduate high school and attend college. She enrolled at Southern University and A&M College of Baton Rouge to pursue a major in Elementary Education. Ernestine has managed to maintain an acceptable G.P.A and fulfill her passion of working
with children and helping families. Before joining Families Helping Families, Ernestine worked with Volunteers of America, The Riley Center for Children and Families-Parker House as well as Big Buddy, Boys and
Girls Club, Volunteers of America’s Day of Leisure and helped others in her community Register to Vote.
She enjoys her job and is greatly looking forward to helping families get back to being families and helping
children reach their full potential.
Jasmine Blanks also joins the FSO as a Certified Youth Training and Support Specialist.
Jasmine has
lived in Baton Rouge most of her life. She is a graduate of Louisiana State University and plans to continue
her education in the Public Health field. Understanding what it’s like having a younger brother with a developmental disability needing constant care, has given Jasmine passion for helping others. In her free time,
she enjoys reading, traveling, and hanging out with good friends. Family is always first on Jasmine’s list and
she loves the close relationship she has with hers. Jasmine is very excited about joining Families Helping
Families and the Family Support Organization and looks forward to making a difference in the lives of many
families.
Becky Decker joins the FSO as a Parent Trainer/Group Facilitator. Becky is a social worker by profession and is also the mother of a teenager with special needs. Becky recently retired from the State Department of Health and Hospitals after 29 years, where she provided social services and supports to families of
children with special health needs via the Louisiana Office of Public Health (OPH)/Children's Special Health
Services Program (CSHS) and to families of children with emotional or behavioral challenges. At CSHS, she
often referred clients to Families Helping Families for parent support and I.E.P. guidance, and she worked
collaboratively with FHFGBR staff in the CSHS medical clinics. Becky was also an active participant on the
state and regional Interagency Service Coordination (ISC) Teams, which linked youth with severe emotional/behavioral conditions to community resources. During Hurricanes Katrina and Gustav, Becky was the
behavioral health team leader in the Medical Special Needs Shelter at LSU in Baton Rouge.
Becky obtained her Masters degree in Social Work from Louisiana State University in 1982. Since then,
she has worked in both Regions 9 and 2, having traveled throughout the parishes in order to meet with
families in their home areas to provide services. Her teenaged son, Ryan, has an autism spectrum disorder
and attends Hope Academy in Baton Rouge. Becky is excited to serve as a Parent Trainer/Group Facilitator
for the FSO and aspires to empower families as they strive to reach the goals they envision for their children's future.
20
APRIL — JUNE 2012
ACTIVE FOR
AUTISM 2012
Pictures provided
by Ray Tse
21
APRIL — JUNE 2012
A Special Thank You to Lamar Advertising for Spreading the
Word About Active for Autism 2012 on Your Billboards
Throughout Baton Rouge!!!!
To view more pictures please go to LensArt Photography by Tobi Gomez at:
Gallery:
http://lensart.zenfolio.com/p178458524
Slideshow:
http://lensart.zenfolio.com/p178458524/slideshow
22
APRIL — JUNE 2012
Training
Pictures
AFA 2012
BREAKFAST
ON LOCATION
AT
Fleming’s
Steakhouse
23
Families Helping Families
of Greater Baton Rouge
2356 Drusilla Lane
“It’s who we are, it’s what we do.”

Spring - Families Helping Families

Transcription

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