Spring 2014 - The Resource Magazine

Transcription

Resource Magazine
Spring 2014
“For Families with Special Needs”
www.specialneedsresource.ca
Inside:
Excel Society, The First 50 Years
Special Needs Summer Camps
Need help?
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Lucas Publishing
Resource Magazine
TABLE OF CONTENTS
4
Cerebral Palsy Association in Alberta
6
Canadian Paraplegic Association: Chair-Leaders
7
Early Education at Elves Special Needs Society
9
Students Engaged in Person-Centred Care at CSS
11 Wheelchair Sports Alberta
12 DDRC – Integrated Living Services
14 Pediatric Powered Mobility: The When and Why
3
Publisher:
Donna Lucas
Editor:
Louise Schutte
Contributors:
Alberta Monitoring for Health Program
with Canadian Diabetes Association
Bishop and Mckenzie
Canadian Paraplegic Association
(Alberta)
Catholic Social Services: Ellen Bremner
17 The Safeway Walk for Muscular Dystrophy
– helping make muscles move!
Cerebral Palsy Association in Alberta
Children’s Link: Sandra Werle, M.Ed.
Feature Section: Summer Camps
Dominion Lending Centres:
Michele Biddlecombe, AMP
19 Children's Link - Special Needs Summer Camps
Easter Seals Alberta
Elves Special Needs Society: Nicole Fitch
21 Check out Programs Offered
by the Paralympic Sports Association
23 Spring and Summer Camps Offered
at Collicutt Centre
25 Easter Seals: A summer camp story for the child who
doesn't fit the summer camp mold.
26 DiscoverE Camps at the U of A
28 Clinical Services U of A
30 Alberta Monitoring for Health and Canadian
Diabetes Association: Coverage for diabetes
management supplies for eligible Albertans
31 Dominion Lending Centres: Money:
When "Mine" Becomes "Ours"
Muscular Dystrophy Canada:
Rachael Chan
Permobil: Magdalena Love,
Clinical Education Specialist
Wheelchair Sports Alberta
Production and Design:
Roxane Brisson Design
Email ad copy to:
[email protected]
Distribution:
Wall2Wall Media
Distributed Quarterly
9763-64th Avenue
Edmonton, AB T6E 0J4
Ph: 780.988.9637 Fax: 780.988.9687
Email: [email protected]
34 Register Early for Walk Now For Autism Speaks
Web: www.specialneedsresource.ca
36 Anthony at Your Service: Venturing Forward
The views presented may not always be those
held by Lucas Publishing. We publish quarterly
throughout Edmonton, Calgary, Red Deer &
Airdrie.
Spring 2014
We welcome your comments.
Lucas Publishing | Spring 2014
4
5
6
Resource Magazine
Chair-Leaders are community leaders who
volunteer to spend a day using a wheelchair
and have committed to supporting the Canadian Paraplegic Association (Alberta), with
the goal to empower persons with spinal cord
injuries and other physical disabilities to
achieve independence and full community
participation. With the month of May being Spinal Cord Injury Awareness Month,
it would only seem natural to hold an event
which pays tribute to the occasion.
Chair-Leaders is an event that focuses primarily on the issues surrounding accessibility and mobility for persons with spinal cord
injuries and other disabilities. Developed in
Nova Scotia, Chair-Leaders has already established itself as a fun and effective awareness
effort. This special event has involved community leaders wheeling through their workdays,
allowing them to gain firsthand insight into
what accessibility means to individuals with
disabilities, our aging population, or even parents navigating with strollers.
Events are already underway for Edmonton, Calgary, Grande Prairie, and Lethbridge.
jeetSohi, the Hon. Laurie Hawn, among many
others. To date, we have had over 100 ChairLeaders from a variety of community sectors,
including government officials, CEOs, mayors of various communities, as well as our very
first youth ambassador, Joshua Brindza, who
participated in 2012 and returned in 2013
with a couple of his peers.
Although the Chair-Leaders event is intended to be an eye-opener for participants,
it also typically aims to raise funds during the
campaign. These funds are used to help CPA
(Alberta) in continuing to provide services to
individuals with mobility issues.
Chair-Leaders Alumni include Dr. Raj
Sherman, David Eggen, MLA, Grande Prairie
Mayor Bill Given, Edmonton Mayor Stephen
Mandel, Edmonton City Councilor Amar-
For further information regarding our
5th Annual Chair-Leaders“Enabling Access”
Event, contact Ross Norton at 780-424-6312
or [email protected]. We look forward to your support in raising awareness and
ensuring a barrier free future for all!
Plumbers & Pipefitters Union
Local 488
Committed to Quality, Safety & Education
Ph: (780) 452-7080 Fax: (780) 452-1291
16214 - 118th Ave, Edmonton, Alberta
Business Manager - Larry Matychuk
Resource Magazine
7
Early Education at
By: Nicole Fitch
Communications & Policy Coordinator
When it comes to early education, Elves
Special Needs Society is all about learning,
laughter, and fun. With over 130 children in
its preschool and kindergarten programs the
Society has the expertise within its multidisciplinary team to engage and foster each child’s
development.
However, no two children are exactly alike.
“Each kid is different, and they all learn
differently. We have to adjust our teaching to
the kids,” said Brandi Senio, Teacher within
Elves’ Early Education Program. “We need
to know which kids need time by themselves
to complete a task. Some students you speak
to in a quiet tone or use more simple terms.
Others need to hold fidget toys, use weighted
snake belts or sit in a rocking chair.”
The first six years of a child’s life are important to his or her development. Studies
indicate children who are nurtured and given
positive attention during the early years are
less likely to develop learning, behavioural,
emotional, and health problems. At Elves,
children from ages 2 ½ to six, are given a
place they can learn while having their various
needs adapted to. Children attending Elves’
programs may have special needs such as severe delays in speech and language, Autism,
Fetal Alcohol Spectrum Disorder, Down Syndrome, and fine/gross motor development.
These needs are met through specialized
supports within a caring environment. Supports are offered by Teachers, Educational
Assistants, Nurses, Social Workers, an Educational Consultant, Occupational Therapists,
Physical Therapists, and Speech Language
Pathologists.
One newly introduced support is the
Pragmatic Organization Dynamic Display
(PODD) System. The PODD System has
been integrated into the Society by Talia West,
Elves’ Speech Language Pathologist. This tool
provides non-verbal children, or individuals
who have difficulty with speech, with a higher
form of communication. Whole words, symbol vocabulary, and pictures are organized in
a communication book staff members carry
with them to assist children in having an enriched conversation beyond basic signs and
gestures.
“Kids who are cognitively delayed, or have
sensory issues, are able to communicate because they have access to the pictures,” said
West. She explained that the PODD System
can also be used at home with parents/caregivers as children are given their own books to
take with them.
West added that the PODD System works
well for children who are upset as challenging
behaviours often have a communicative in-
tent. The PODD System may break the cycle
of why they are distressed, encouraging a child
to communicate what is wrong and choose to
go onto the next activity in their day.
“It allows them to talk about their feelings,
wants and needs,” said West.
Preschool and kindergarten programs
within Elves also let children grow and expand
as they reach their individual milestones. Senio explained that milestones can include saying their own name for the first time, sitting
with no assistance, walking down the hall, or
lining up with their hands down.
April Bourque, Teacher at Elves Child Development Centre, believes early education is
important as more than 85 per cent of brain
development happens by age five. Therefore,
exposing children to as many different concepts as possible helps solidify the foundation
for children to be better prepared when they
enter grade school.
“We teach them how to interact and play
with their peers and to learn what they like
and don’t like,” said Bourque. Children are
also introduced to concepts such as daily routines, toileting, social interactions, and foundational academics through developmentally
appropriate practices.
“Right now we’re using Itchy’s Alphabet
which is a visual to accompany the letter such
as B for bat, C for cookie and the picture is
the same shape as the letter,” added Bourque.
“Kids are also practicing letters by drawing
them with shaving cream and on gel bags with
a car using the tires as a track.” To further incorporate the alphabet and foster literacy children read sight word books and are asked to
put fingers on each word and say it out loud.
8
Resource Magazine
Different learning styles are incorporated
into Elves’ programs to support visual, auditory, tactile, and movement learners. Children use these strategies in a variety of ways
such as drawing pictures, or using blocks
to demonstrate they understand concepts.
When working on the concept of “big, bigger, and biggest” children learn by lining up
and determining who is taller.
Within its inclusive environment multiculturalism is also supported within Elves.
The Society integrates music, food, and arts
from different regions of the world into its
activities and programming. During Chinese
New Year children within Bourque’s class
made masks and participated in dragon dancing along with volunteers from Westminster
School. Her class is also looking forward to
Mardi Gras festivities where children will
celebrate by listening to traditional jazz music. Classrooms have also invited Kookums
(Grandmothers) to make bannock and do
crafts with the children.
“Children are told that being different
makes us special and makes us interesting,”
said Bourque.
Serving Vulnerable Albertans Since 1964
The Excel Society, a Non-Profit organization, celebrates its 50th
Anniversary in 2014. Excel supports and advocates for people
with mental, physical and developmental disabilities in both
Edmonton and Calgary.
NOW ACCEPTING REGISTRATIONS FOR THE
2014/2015 SCHOOL YEAR
Elves Special Needs Society provides Pre-school,
Kindergarten, School and FASD Respite Programs.
An Accredited, non-profit Designated Special
Education School offering:
• Pre-school programs for
children diagnosed with
Autism, Fetal Alcohol
Spectrum Disorder (FASD),
multiple disabilities or
complex needs, speech, gross/
fine motor, cognitive or
behavioural delays.
• School Program for students
with complex needs,
developmental delays and/or
Autism, Down Syndrome and
Cerebral Palsy.
• On-site staff including
Certified Teachers, Teacher
Assistants, Nurses, Educational
Consultant, Occupational and
Physical Therapists, Speech
Language Pathologists and
Social Workers.
Please contact Social Workers at 780.454.5310
Phone: 780.441.7980 • Fax: 780.421.7563 Email: [email protected]
www.excelsociety.org
Office Address: 10825 - 142 Street
P: 780.454.5310 Fax: 780.454.5889 email: [email protected]
Visit www.elves-society.com for further information.
Business No. 118898360RR0001
Resource Magazine
9
Students Engaged in Person-Centred Care at CSS
"We need to be heard. To be seen not as a disability,
but as a person who has and will continue to bloom.” Robert Hensel
A unique and mutually beneficial partnership has created a fertile field where personcentred care and community service learning
is cultivating unexpected returns. Catholic
Social Services’ Disability Service and the
Faculty of Pharmacy at the University of Alberta are collaborating through the U of A’s
Community Service Learning Program to
give pharmacy students an experiential understanding of how relationship building can
significantly improve effective client care.
Through the three-year-old partnership
between Catholic Social Services (CSS) and
the Faculty of Pharmacy, first year pharmacy
students enrolled in the U of A’s Pharmacy
300 – Service Learning Course, are expected
to engage with the community and volunteer
60 hours of service in a human service organization.
Cheryl Cox, Experiential Education Coordinator with the Faculty of Pharmacy and
Pharmaceutical Sciences at University of Alberta, recently said the following about the
value of community engagement: “The service
learning program opens up a very important
door for pharmacy students to be able to better understand the lives and needs of others
and foster citizenship and community engagement. Students provide physical, and more
importantly, emotional help and support
through relationship building and getting to
know individuals to enhance client-centred
care. Students have the potential to become
better health care providers as a result of their
service learning experiences.”
Two particularly productive student volunteer placements began in October 2013
with Catholic Social Services’ Disability Service. The Service is focused on increasing independence and improving the quality of life
for adults with developmental and/or physical
disabilities; it currently operates over 25 residential group home programs, and supports
more than 120 outreach clients. Jenna Buxton and Marie Laursen are first year pharmacy
students who chose to volunteer in programs
serving individuals with developmental disabilities.
Marie Laursen spoke about her experience
at a residential program serving five women,
ages 27-65, with developmental disabilities.
“The experience has really opened my eyes! I
have learned that individuals with developmental disabilities are a lot more complex and
capable than I thought they would be. Every
individual has their own unique personality,
quirks, and abilities. Taking the time to get to
know each resident and uncovering the layers
of the person inside has been a life-altering experience for me.”
The residents and staff feel the same way
about Marie’s presence. Catherine Alliston,
Community Disability Team Leader at the
Clareview group home, commented, “Marie
has fit in wonderfully at the program! Her involvement with the residents has taken a lot of
pressure off core staff so they can concentrate
more on personal care. Marie has introduced
some unique activities and experiences that
clients might never have had without her creativity and client focus.”
In October, Marie organized a Halloween
pumpkin carving night using home-grown
pumpkins from her family’s farm. Again, Marie exclaimed, “I was surprised at the ladies’
dexterity and creativity with the pumpkin
carving experience! I provided the pumpkins,
but the women took on the project with enthusiasm and great ideas.” Marie has since
organized movie nights, Christmas decorating
parties, baking nights, birthday parties, and
community outings. Catherine Alliston remarked, “The residents have the date marked
on their calendar when Marie is coming to
volunteer, and they often forgo other outings
so they can be at home when Marie arrives!
They value their relationship with her and often brainstorm ideas about what new and fun
activities they can do together.”
Another standout community service
placement has been an enterprising volunteerclient match relationship between Jenna Buxton, pharmacy student, and Mike*, a resident
at a southside residential program. Mike is
an adult with a developmental and physical
disability, and is wheelchair bound. Mike
and Jenna’s match is a great fit because they
both love to bake and this mutual passion has
turned into a part-time business venture for
Mike.
Each Tuesday, Jenna arrives at the program
and consults with Mike about the treats he
wants to help make for Wednesday’s sale day.
They talk about what treats are selling best,
customer requests, and then get busy in the
kitchen baking and wrapping up a fresh batch
of treats. On Wednesday, Mike brings his
treats to one of Catholic Social Services’ offices
to sell to the 60 staff and volunteers who work
in the building. Shahad Bharmal, Accounting
Supervisor with Catholic Social Services, and
a regular customer of Mike’s commented, “I
enjoy the fresh, homemade variety of affordable treats Mike brings to us, and it’s a great
way for our administrative staff to witness the
inspiring work our front line staff and volunteers are doing.”
... for brighter futures.
One of four programs that address Fetal Alcohol Spectrum
Disorder (FASD), the McDaniel Youth Program provides
mentorship support to youth aged 14 to 19, helping them
transition into adulthood.
in support of Catholic Social Services
www.signofhope.ab.ca | 780 439 HOPE
10
Resource Magazine
Dogs with Wings
About her student volunteer expe-
rience to date, Jenna stated, “Any-
body can learn the physiology
whole new world of safety, security and independence for
Since 1996, Dogs with Wings has been responding
and chemistry of pharmacy, but
their client.
to the needs of Albertans with disabilities. Originally
it’s much harder to learn how to
Next on its list, DWW began graduating Service Dogs
providing only guide dogs for the blind and
visually
effectively
andhelp
communithat can
people to open doors, turn lights on and
impaired, they quickly began hearing from potential
clients connect
withdog
patients.
Building
a rela- items. “These dogs are a gameoff, and
pick up dropped
with other challenges, anxious to know if ancate
assistance
changer
someone
who is confined to a wheelchair, or
could help them.
tionship with someone
so for
that
you see
perhaps
has limited
use of their hands,”notes Wheelwright.
“We’ve always tried to respond them
positivelyastoa ideas
for in the
person
context
of their
“Not only are they useful helpmates for our clients, but they
new programs,” says Executive Director
John Wheelwright,
life, and not just a person with a disability,
become valued and loved friends too.” Service dogs can
noting, “We are only as good as our ability to meet a client’s
will help provide better patient care.” Jenna
also help someone with balance issues, acting as a brace
needs.”
also continuing
expressed toherchange
gratitude
staff
support.
“I to a bed or from a car.
when
moving
from a chair
How the organization
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have learned
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have supported
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programming
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changing
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encouraged
our Autism spectrum disorder, Dogs
children
diagnosed with
the
the development
of Dogs
with Wings Assistance
with Wings introduced its Autism Service Dog program
Dog
Society,venture.”
the only recognized assistance dog program
business
in late 2007. Since that time, it has provided almost 20
headquartered in, and providing dogs to Albertans.
arestream
thrilled
withDogs
ourwith
collaborative
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U of animals to children throughout
of thesewith
specially
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the province.
Illes says, ”Children with Autism don’t
Guide
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understand
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Agencyclients
Volunteer
forward
unexpectedly,
perhaps into traffic or other dangerous
public,
the workplace
or at home.
“These dogs
will mark
opportunities
to engage
students
through
community
service learning
” The dogs “anchor” the child by a tether and
changes
in enhance
elevation, such
as stairs, ofa curb
or uneven
that will
the quality
life for
the peoplesituation.
we serve.”
will not move when a child reaches the end of the tether,
pavement,” says Training Director, Maria Illes. “They will
*Note:
The client’s
nameescalators
has been
joining thehis
dogprivacy.
to the child. The dogs also provide a calming
also
help locating
doors, elevators,
or tochanged
navigate to protect
influence on these children, helping them to self-soothe.
along a known route.” In this way, they can open up a
Wheelwright says that Dogs with Wings is particularly
proud of its Facility Dogs that are becoming more common
in classrooms and other institutional settings. “One of our
dogs was given an Excellence in Teaching award this year
for its work in a local school, a real first!”
But the dogs and their human clients are only one part
of this wonderful organization. “We couldn’t do much
of anything without the efforts of our volunteers,” says
Volunteer Coordinator Lindsey Rudolph. “Our dogs live
with volunteer families while they are in school with us,
so they work hard during the day and then get lots of love
and down-time in the evening.” She notes that it takes two
years of regular training, testing and refinement in order
to graduate a dog. The school runs a number of different
volunteer programs which keeps over 200 people active
within the organization. “Some days, it’s pretty crazy at the
Training Centre, with Puppy Raisers, Cuddlers and clients
coming and going.” But knowing that at the end of it a very
special dog will be matched with an equally special client
makes it all worthwhile: “When you see the love between
a client and their dog, and hear the stories about what an
immense difference they have made, then it makes it all
worthwhile.”
WE SELL SCOOTERS
FOR $1000 LESS!
“Dogs with Wings - placing highly skilled Guide
and Service Dogs with Albertans since 1996”.
PHONE: 780.944.8011
resource magazine
www.DogsWithWings.ca
FALL 2011
::
17
Resource Magazine
11
Wheelchair
Sports
Alberta
Background
Wheelchair Sports Alberta (WSA) is a
registered charitable non-profit association
responsible for the development and delivery
of provincial level sport programs and services
throughout Alberta. Specific sports that fall
under the WSA umbrella include: Wheelchair
Basketball, Wheelchair Rugby, Wheelchair
Tennis, Wheelchair Athletics, and Sledge
Hockey. WSA works in partnership with local, regional, provincial and national sport organizations, and local sport system providers
to create a dynamic environment for wheelchair sport participation through inclusion at
all levels.
Our Services
•C
lub Request
SA has a positive working relationship
W
with all the clubs in the province. WSA
will assist any club who wishes to host a
tournament or clinic.
• Equipment Rental
SA rents specialized equipment to its
W
members. We loan racing and sport chairs,
rollers, and sports equipment to developing
athletes.
• Scholarship Program
SA provides financial assistance to
W
Alberta’s top developing and elite athletes.
Our scholarships and bursaries assist athletes
in training, competition, and equipment
costs.
• Coaching & Officiating
SA aids in the development of new and
W
experienced coaches and officials who
require assistance to further their training.
• Insurance
SA provides affordable insurance for
W
all its members, covering general accident
and third party liability for all training and
competition activities.
• Training Assistance Program
The TAP program provides assistance for
athletes to attend approved WSA training
and development camps, clinics, and
workshops
Bridging The Gap – Getting
Physically Active
BTG offers individuals with physical disabilities the opportunity to get involved in
wheelchair sports. If you are looking to get
involved in sports at either a recreational or
competitive level, we can help!
Our Have-A-Go Days offer a variety of different sports for participants to sample in a fun
and relaxed atmosphere. Current wheelchair
athletes demonstrate sports and share their
stories of getting involved and being physically active. Once individuals have identified a
sport that interests them, they can participate
regularly in a weekly developmental program.
The focus of the program is to introduce and
support continued involvement of individuals
with physical disabilities in wheelchair sports
and recreational opportunities, promoting an
active, healthy lifestyle and improved quality
of life.
Our Weekly Programs are an opportunity
for clients to try out different sports at a recreational level. If they wish to continue to a
more competitive team, we can offer support
in finding an appropriate team. If they wish
to continue at a recreational level, they are encouraged to keep coming to the Weekly Program! Each week, a sport is selected based on
the participants in attendance. If you are interested in learning more
about our WSA Program or Have-A-Go Days,
please email [email protected]. Visit our website
www.abwheelchairsport.ca
Highlights of 2013
WSA was proud to host the Coloplast
2013 Wheelchair Rugby National Championships in Calgary over the summer. Ten teams
from across Canada competed in the tournament.
Zak Madell, a student from Okotoks, AB,
was the only Albertan named to the Canadian
wheelchair rugby team for the 2012 Paralympic Games, despite less than a year-and-a-half
of experience practicing the sport. He is training hard to bring home the gold in Rio 2016.
Three Albertans were chosen to be a part
of the National Basketball Teams. On the
men’s team we have Chad Jassman and on the
women’s we have Tara Feser & Alarissa Haak
Coming up…
We are proud to be working with the Alberta Northern Lights Wheelchair Basketball
Society, to host the 2014 Junior National
Wheelchair Basketball Championship on
March 28-30. The tournament will feature
the top junior provincial teams from across
Canada.
We also have two regional tournaments
called the Prairie Cup coming up in the
summer and fall for Wheelchair Tennis and
Wheelchair Rugby.
As we continue to grow, we will be holding more Have-A-Go Days and Bridging the
Gap events throughout the year. These programs introduce wheelchair users to a variety
of wheelchair sports.
Follow us on Twitter @WSA_Alberta
Like us on Facebook /WheelchairSportsAlberta
12
Resource Magazine
DDRC – Integrated Living Services
For over a decade the Developmental Disabilities Resource Centre of Calgary (DDRC)
has been providing their adult clients with the
support they need to form relationships with
their neighbours, and become involved, active members of their communities through a
program, formerly known as the Community
Living Network. Though the program still exists, it has been recently renamed Integrated
Living Services.
“The main reason for the name change is to
give people a better idea of what we do through
this program,” explains Kate Kerr, Director,
Communications and Development. “We
still have clients living in the community, but
we wanted to stress the importance of people
with developmental disabilities being fully
integrated into community life. Sometimes,
people think it’s enough to show that the possibility for inclusion exists, but we want to
be sure that everyone, especially those people
who aren’t familiar with our agency or services,
knows the importance of really including our
clients.”
By: Louise Schutte
“Our Integrated Living Services (ILS) program is tailored to help adults with developmental disabilities secure living arrangements
in the communities they choose,” Kerr continues. “The Integrated Living Team (ILT) is
made up of a variety of DDRC employees and
contractors, including:
Support Workers (SW) and Community
Resource Workers (CRWs) who “check in”
with clients who are living independently, to
support them with a variety of household duties and tasks, such as budgeting. They also
support our clients to get to know the community resources around them, including
their neighbours.
Integrated Living Practitioners (ILPs) provide live-in support, either in their own home,
or in a client's home. ILPs also help with
budgeting and household duties, developing
community resources, and neighbourhood
involvement.”
Response of the community has been very
positive. “We’ve never had a complaint from
a neighbour or community member. Our
clients have been made to feel very welcome:
people know their names, they get invited to
barbeques, or over for a coffee or a beer. They
help each other out. One of our clients likes to
cut the grass for his neighbours,” declares Barb
Czyz, ILP Team Leader.
“People have told us that they appreciate the opportunity that the ILP gives their
children to get to know people with developmental disabilities, and grow up alongside our
clients. The ILPs also become role models for
their community members; they embrace our
clients as a part of their families, and neighbours in turn embrace them as a part of the
community,” adds ILP Team Leader, Sharon
Forman.
“As an agency, our mission is to promote
awareness and support communities to include persons with developmental disabilities,
thereby strengthening communities for all
citizens. The ILT provides community living
support that offers people choices and helps
recognize our community’s capacity to include
people with developmental disabilities. One
Integrated Living
Services (ILS) is tailored
to help adults with
developmental
disabilities secure
living arrangements in
the communities they
choose.
Integrated
Living
Services
As an ILP, you can
enjoy the benefit of
doing meaningful work
from the comfort of
your own home. Meet
new people, build
life-long relationships,
and experience the
tremendous support of
our Integrated Living
Team.
For more information, or to apply, e-mail [email protected].
Resource Magazine
of the main ways in which the ILT helps
clients form relationships is by introducing
them to possible ILPs, to see which will be
the best fit for the client. We always aim for
a fulfilling partnership with our integrated
living support arrangements,” Kerr states.
Support workers, community resource
workers, and home support workers check
in with their clients from time to time. “This
will vary, as the services ILPs provide are
specifically tailored to meet the needs of the
individuals they support. During our comprehensive matching process, the needs and
preferences of both the client and ILP are
considered. For example: a client that lives
independently may have an ILP “check in”
for support, while other clients live full-time
with single individuals or families with children. What’s really important in this process
is that ILP clients and support workers are
able to choose who they would like to live
with,” Kerr emphasizes.
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program. Of those clients, 15 live on their
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DDRC's
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403-240-3111.
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with new paid
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provide.
an outdoor
that tickles
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can be space
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whenthesearching
for andand
choosing
rich with
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where children
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special
nanny for a child.
can discover themselves and the world around them.
13
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The Centre for Autism Services Alberta offers Early
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services up to age 17; a wide variety of community
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e: [email protected]
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4752-99 St., Edmonton, AB
The GRIT Program is an exemplary, fully-inclusive,
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14
Resource Magazine
Pediatric Powered Mobility:
The When and Why
By: Magdalena Love
Clinical Education Specialist, Permobil
For children, having access to functional
and independent mobility is critical to the development of cognitive skills, visual-perceptual skills, and participation in daily activities.
Historically, the use of powered mobility was
only used with older children and adults – as a
last resort after all other types of mobility had
failed. Even today, some parents and therapists may have the perception that powered
mobility will decrease their child’s desire to
walk and that their child will become “lazy”.
However, current research demonstrates the
opposite. Powered mobility has been shown
to improve the child’s motivation to interact
with the environment and does not reduce
gross motor function.
Movement to Learn vs.
Learning to move
Movement, vision, cognition, and learning are closely tied together as a young brain
develops. Cognition develops best through
independent movement – children are faced
with more and more complex spatial and
reasoning problems (how to navigate around
objects, how to not fall off steps, how to remember paths to familiar places, etc.).
Exploration of the environment is an important component in a child’s development.
Think of a typically developing child; he is
rolling, reaching, and crawling by seven to
eight months and walking between 12 and 15
months. Learned helplessness is a psychological condition in which an individual believes
that he is helpless and has no control over his
environment. Learned helplessness is firmly
established by age four in children who have
not had functional mobility (Butler, 1991).
Even if the child is expected to eventually
ambulate with or without assistive devices,
providing access to mobility to keep up with
typically developing peers is vital to ensure
that developmental milestones are reached.
Some parents express concern that providing
power mobility will slow down their child’s
desire to ambulate; however, access to mobility may actually improve the child’s motivation to participate and use their trunks and
hands to explore the environment.
Increasing evidence is suggesting that power mobility trials, if needed, be initiated early
to allow children with mobility impairments
the same chance at reaching cognitive, psychosocial, and visual-perceptual milestones as
aged-matched peers. Introducing a powered
mobility device as a therapeutic tool as early
as 12 months old can positively influence a
child’s development. There is even research
that children as young as 18 months old are
able to operate a power wheelchair with independence (and age-appropriate supervision).
Are they ready for powered
mobility?
Introducing and assessing for powered
mobility at an early age is worthwhile if you
feel that the child will not be able to efficiently
ambulate in all age appropriate environments
before the age of four.
Even if the child is not expected to ever
drive a power wheelchair without assistance,
it is still beneficial to utilize a power chair
therapeutically. The visual system doesn’t develop as well with passive movement as it does
with active movement. Think of being driven
to an unfamiliar location by a friend. Would
you be able to navigate your way back? It is
the same concept for a child being passively
pushed to a classroom – they will not develop
the navigational skills at the same rate. Even
for children that will always need supervision,
there can be improvements in cognition, visual development, and participation with access to mobility, in fact, this could be their
only chance to explore their environment to
develop those skills.
There are a couple of aspects to consider
when the rehab team decides to consider powered mobility device for someone. First, how
will they control the chair? Joysticks are common; however, technology has allowed for
many different options in terms of switches
and electronics. Switches and joysticks can be
mounted almost anywhere on the wheelchair
– so the individual may be able to control the
chair with any available movement (hand,
head, chin, foot). It may take several trials to
determine the best option for controlling the
wheelchair.
Cognitively, powered mobility often helps
to develop the same skills that make a child
a safe, functional driver. Do not expect the
child to be a functional driver on the first
trial. Minimal prerequisites should be accounted for in young children prior to a trial.
Powered mobility provides a very unique
sensorimotor experience – it combines the visual, vestibular, and proprioceptive input that
young minds seek out. A child who does not
consistently interact with computer games or
switches may even respond better to powered
mobility due to the increased stimulation of
the task.
Practice makes Learning
Trialing of equipment is critical to ensuring success in powered mobility. Contact
dealers and manufacturers to obtain the needed equipment. During the process, start out
in a familiar but open environment, but give
the child room to explore the functions of
the chair. Look for beginning signs of cause
and effect, “if I move this joystick the chair
moves”. Programming can be adjusted to allow for working on skills such as starting and
stopping using only one direction. Further
training and interactions with environments
can help to further develop the problem solving and spatial skills needed for safe mobil-
Resource Magazine
ity. At all times, age-appropriate supervision
should be employed. Research suggests training programs of six weeks with daily driving
may be needed for very young users of powered mobility – one hour, one to two times a
week is not enough practice on these power
mobility skills. Of course, safety measures
such as a remote stop switch and an attendant
control should always be considered for children in the midst of power mobility training.
When considering verbal directives – provide
positive feedback (“You found the table!” versus “you crashed!”) and try and suggest things
rather than issuing commands (“lift your hand
off” versus “stop”) (Jones et al., 2003).
etc.) with ease and efficiency. Exercise, on the
other hand, is an activity that requires physical
effort and is tiring. Children with disabilities,
just like their peers, benefit from exercise to
improve physical and cardiovascular health.
However, a child’s primary mobility device
should not be confused with a piece of exercise
equipment. Imagine if we were told we had to
jog everywhere instead of walking – it would
be exhausting!
There are three aspects to consider when
thinking about functional mobility:
The second aspect of functional mobility
to consider is how much the child is able to interact with the environment while navigating
the environment. Children use mobility as a
tool to explore their environment, and if the
hands are being used to maintain a standing
position (in the case of a walker for example),
they will have a reduced ability to manipulate
objects throughout their environment.
• Amount of effort needed
• Ability to complete daily activities
• Use during a variety of environments
It is important to note the difference between mobility and exercise. Functional mobility is the ability to move in a variety of daily
environments (school, playground, home,
The last consideration when thinking
of functional mobility is the child’s ability
to get around independently in all types of
daily environments, not just the flat hallways
of a school, but over carpeting at home, uneven terrain, the playground, grass, etc. One
should consider all typical environments prior
to prescribing a mobility device.
What is “functional” mobility?
15
Resources used:
Butler, C. (1991). Augmentative Mobility:
why do it? Phys Med Rehabilil Clin North Am,
2; 801-815.
Furumasu, J., Guerette, P., & Tefft, D.
(2004). Relevance of the Pediatric Powered
Wheelchair Screening Test for children with
cerebral palsy. Developmental Medicine and
Child Neurology, 46(7), 468-474.
Galloway, J.C., Ryu, J-C., & Agrawal, S.K.
(2008). Babies driving robots: self-generated
mobility in very young infants. Intel Serv Robots. DOI 10.1007/a11370-007-0011-2.
Jones, M. A., McEwen, I. R., & Hansen, L.
(2003). Use of power mobility for a young child
with spinal muscular atrophy. Physical Therapy,
83, 253-262.
Sullivan, M. & Lewis, M. (2000). Assistive Technology for the Very Young: Creating
Responsive Environments. Inf Young Children;
12(4), 34-52.
Teeft, D., Guerette, P., & Furumasu, J.
(1999). Cognitive predictors of young children’s
readiness for powered mobility. Deveop Med
Child Neurol 41: 665-670.
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16
Resource Magazine
The C500 Corpus® 3G is designed for the collage of life…
busy streets, meetings, lunches, entertainment and nightlife.
With its independent suspension, the powerful C500 provides
a smooth ride over a variety of terrains from sidewalks to grassy
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the ultimate in comfort for your exciting lifestyle.
Permobil.com
16
Resource Magazine
17
The Safeway Walk for Muscular Dystrophy
– helping make muscles move!
By: Rachael Chan
The Safeway Walk for Muscular Dystrophy
is back again in 2014, and is in its seventh year
in Alberta. The Walk is a fun, fully accessible,
family-oriented event which includes activities
for kids, snacks, prizes, and more. It’s a great
day out for everyone!
Nine communities across Alberta are busy
planning their events taking place this summer:
May 24 – Medicine Hat
May 31 – Fort McMurray
June 7 – Hinton
June 7 – Lethbridge
June 7 – Red Deer
June 21 – Lloydminster
September 6 – Edmonton
September 13 – Calgary
September 13 – Grande Prairie
The Safeway Walk for Muscular Dystrophy is particularly significant this year as 2014
also marks Muscular Dystrophy Canada’s 60th
year of progress and work by our tireless volunteers and members.
In recognition of this milestone there are
60 Walks for Muscular Dystrophy happening
across the country. This year we are celebrating how much we’ve accomplished together as
a community, while also recognizing that our
work is not over yet. Our work begins with
18
Resource Magazine
helping people live their daily lives to the fullest, and ends with one day finding a cure.
cular dystrophy can also lead to shortened life
expectancy. There is currently no cure.
the last 60 years, and for continued support
Muscular dystrophy is the name given to
a group of genetic muscle disorders characterized by progressive weakness and wasting of
voluntary muscles that control body movement. Children, teens, and adults who live
with these disorders may gradually lose the
ability to do most things we take for granted,
like walking or getting up from a chair. Mus-
In Alberta, the hundreds of individuals
registered with Muscular Dystrophy Canada
face this challenge head on every day. We
help support people whose lives are affected
by neuromuscular disorders through support,
services, equipment, and research.
Dystrophy.
We are so grateful to everyone who has
supported Muscular Dystrophy Canada for
about Muscular Dystrophy Canada, please
of events like the Safeway Walk for Muscular
To register or donate to the Safeway Walk
for Muscular Dystrophy, please visit
www.walkformusculardystrophy.ca to find
the Walk nearest you. To find out more
visit www.muscle.ca
The Alberta Legislature
O P E N
F O R
Y O U
T O
D I S C O V E R
From the development of a diverse workforce
and the welfare of Canadians to meeting the
needs of our customers, Safeway is committed
to being a good corporate citizen.
780.427.7362
www.assembly.ab.ca
Wheelchair accessible
WWW.SAFEWAY.CA
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Special Needs Summer Camps
The weather is improving, and before you
know it the kids will be out of school for the
summer! Since the thought of enduring two
months of unstructured time sends parents of
a child with special needs into full-on panic
mode, most are already beginning to make
arrangements to ensure a successful summer.
For many families, this will include enrolling
their child in a summer camp.
Why Go To Camp?
All kids can learn a great deal from attending camp - children with special needs are no
exception.
Camps help kids gain independence, build
resilience, increase self-confidence, develop
social skills, participate in a broad range of
activities, and learn from hands-on discovery.
Children that participate in camps are exposed
to a range of people, feel a strong sense of belonging to a community, create fond memories, and have fun!
Steps To Choosing A Camp
With so many options, how does one decide on which camp will be the right fit?
The following steps may help:
• Step One – Think about your child’s
personality, interests, skills, diagnosis,
physical condition, behaviours, and
mental/emotional state.
• Step Two – Decide whether you think
a specialized camp (for children with
special needs) would be beneficial, or
whether your child might do well in an
inclusive setting (a camp for the ‘typical’
population) with supports.
Suite 245, 720—28th Street N.E.
Calgary, Alberta T2A 6R3
Phone: 403.230.9158
Fax: 403.230.3252
www.childrenslink.ca
A CENTRAL SOURCE OF INFORMATION FOR
FAMILIES
OF CHILDREN WITH
SPECIAL NEEDS
 Referral services
 Information Links
 One-On-One
Consultation
 Multicultural Support
 Transitional Services
 Coffee Socials
 Workshops
 Fun Family Events
 Hope and
• Step Three – Research your options more
specifically. Keep in mind the following
factors: length of camp (can your child
handle a half-day, full-day, or overnight
camp), structure of camp, willingness
to and experience with accommodating
special needs, type of activities,
transportation, ratio of counsellors to
campers, training level of staff, cost, etc.
• Step Four – If possible, set up meetings
with camp directors, visit camps, or talk
with others whose children have previously
attended camps of interest.
• Step Five – After narrowing down
options, try to include your child in
making final decisions.
• Step Six - Look at funding options. Ask
about camp bursary programs.
SUMMER CAMP FUN!
Individualized camp for children and youth with
special needs, calendar of exciting events
and activities, sibling support
Early bird registration deadline May 15, 2014
Camps offered out of a community centre in Lethbridge, AB
To register, inquire about eligibility, or receive more
information, please contact:
403.320.0911
Encouragement
www.greystokehomes.com
20
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If a Family Support for Children with Disabilities (FSCD) contract is in place, call your
worker to discuss camp funding assistance.
In cases where a need can be demonstrated,
FSCD may share the costs of a specialized
camp with families, or may help pay for the
costs of aide support for a child attending
an inclusive camp. When asking FSCD for
this type of support, parents must be able to
describe the camp(s) they have chosen and
outline the reasons that they are requesting assistance. Another option is to claim camp fees
as a tax benefit under the federal Recreational
or Arts Tax Credit.
share with counsellors. Give the people
who will be working with your child a brief
explanation of the disability, some tips on
dealing with behaviours, an idea of your
child’s likes/dislikes, and some suggestions
about strategies/techniques that work with
your child.
sources for camp aides, visit the Children’s
Link Society website at www.childrenslink.
ca or call our office at 403-230-9158.
Planning Ahead = Happy Campers
Sandra Werle, M.Ed.
Mom of a 15-year old son with complex needs
For a comprehensive listing of where to
find camp information, specific summer
camps for children with special needs, and
Educational Consultant
The Children’s Link Society
Edmonton's unique summer day camp
for children, youth and young adults
with special needs.
• Step Seven – Enroll your child in the
camp(s) of your choice. Keep copies
of the enrollment forms and payment
receipts.
• Step Eight – When it comes time to go,
provide the camp with the tools that they
need to be successful with your child. Some
parents create a one-page sheet, a ‘Child
At-A-Glance’ summary of information to
Proper planning can go a long way towards
ensuring that your child will have wonderful
memories of a summer at camp. So, Keep
Calm and Camp On!
• Enhance motor skills
• Explore creative talents
• Build on life skills
• Exciting Field Trips
For more information call 780-431-8446
HEARTS IN ACTION or visit www.adaptabilities.ca
Responsive Respite Services
Providing both in-home and
facility based (Kidz Hotel)
respite to children with
complex needs who have been
unable to access other respite
services available.
210, 495 36 St. NE, Calgary AB T2A 6K3
P: 403.207.5115 Ext. 298 | F: 402.207.5125
Responsive Childrens Supports Ltd.
Assisting individuals with
ongoing medical conditions
and disabilities to find
employment since 1981
Call: 780.488.8122 • Email: [email protected]
www.osp.ab.ca
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Check out Programs Offered
by the Paralympic Sports Association
By: Louise Schutte
The Paralympic Sports Association (PSA)
is a local Edmonton non-profit organization
that has been providing recreation and sport
programs for children, youth, adults, and seniors with disabilities for over 49 years.
“The PSA recognizes that social, physical,
and mental fitness are essential for an individual to attain a love of life and contributes to
one’s overall health and well-being. The PSA
Inclusion Project for persons with a disability,
to be implemented by the PSA, is a project
aimed to put a foundation in place that will
enable increased participation in PSA programming for individuals with a disability.
PSA has established programs in 13 different
sport and recreational activities in Edmonton
and surrounding area, enabling individuals
with physical, developmental, and cognitive
impairments to participate in sport and recreation. The funding will be used to assist with
covering costs of running PSA programs, from
facility costs, staff wages, equipment costs and
repairs, and volunteer support and training,”
says Kim McDonald, Executive Director.
“The PSA sporting programs fill a gap
in the community by giving children with
a disability an opportunity to participate in
adapted sporting opportunities,” McDonald
continues. “Currently in the City of Edmonton there is a lack of adapted sport programs
and little access to the programs already available. Participants benefit from the PSA adapted programs by being given the opportunity
to stay active and fulfill the PSA's mission of
enhancing their social, physical, and mental
skills. When children with a variety of disabilities such as Spina Bifida, Cerebral Palsy,
amputees, and spinal cord injuries, come together onto whichever playing surface used,
their disabilities are no longer an issue, as all
participants are on the same playing level.”
In order to participate in PSA's programs,
individuals are required to obtain an Annual
PSA membership that is valid for one year.
PSA hosts events throughout the year that are
free or at very low cost that members can attend as well.
Money received from donors and sponsors
help PSA keep program fees low so all can participate. These programs are held in facilities
in Edmonton such as Donnan rink, the ACT
Centre, and YMCA pool. Donors can assist
with covering a players program fees for the
year. By donating directly to a PSA programs
through its office, 100% of your donation can
be used to go towards the program of your
choice.
Some of the objectives to benefit people
with physical limitations or disabilities have
been identified as:
1) Increase the number of individuals with
a disability to be active and engaged within the
community
2) Physical Health - increase overall body
health through physical activity and physical
fitness 3) Economic environment - individuals
with a disability are at an economic disadvantage, PSA offers decreased program costs and
depending on income, will waive the program
fees. 4) Social Health - many individuals with a
disability become isolated, with PSA programs
we aim to get individuals out in a group setting 5) PSA programs enable an individual
to become active, which in turn assists in a
person's quality of life, physical and mental
health, social development and overall wellbeing.
“Access to and sustaining a physical active
lifestyle is pertinent for individuals with a disability to decrease risk of health related issues,
increase life expectancy, and increase the quality of life,” declares McDonald. “Through expanding the capacity and sustainability of our
programs, we are increasing the chances of an
individual with a disability not only starting
a program, but through a positive experience
and supportive environment, ensuring that
the individual maintains an active lifestyle.”
Enrolling children in recreation and sports
programs at an early age is encouraged. “PSA
programs create an atmosphere that provides
a great opportunity to open young minds to
the endless possibilities, and to show children
that they can do anything they set out to do.
Attending PSA programs at an early age helps
the individuals realize that they do not have
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to be separated from society because of their
disability and that they can belong to a community.”
Volunteers are considered the lifeblood of
PSA and are welcome to join the PSA team.
“We rely on volunteers in varying degrees for
a lot of the work we do,” McDonald states.
“The PSA is always recruiting volunteers
to assist us at all PSA programs and for the
Summer camps, from volunteers with specialized knowledge on adapted sports, to the
volunteer that just wants to hang out and enjoy meeting new people.” Volunteering is a
great way to get involved in your community.
Q. Why do you clean out your closet?
a) Create Space
b) Relax
c) Donate to Goodwill
d) All of the above
THANK YOU FOR HELPING FELLOW
ALBERTANS WITH DISABILITIES GET JOBS.
Donate. Shop. Do GOOD. Feel GOOD.
Some of the programs that participants
can expect this spring and summer are All
For One Summer Camps, Wheelchair Lacrosse and Swimming. Wheelchair Lacrosse
is in its second year and is a new emerging
sport being held at the ACT gym. Swimming
at YMCA on Saturdays is a continuation of
the winter Adapted Swim program. Anyone interested in PSA programs can register
at any time of the year for any of their programs. goodwill.ab.ca
The Paralympic Sports Association (PSA) is an
inclusive organization dedicated to enhancing
the wellbeing of individuals with a disability
and their support networks through adaptive
recreational and sporting activities.
10024 - 79 Ave Edmonton, AB T6E 1R5
Visit us online at www.parasports.net • email us at [email protected]
Find us on Facebook! Phone 780.439.8687
Enriching Lives through Sport & Recreation
THEY SAID
SHE WOULD
NEVER WALK.
Make an impact helping people with disabilities.
Disability Studies
Chiu School of Business
visit: bowvalleycollege.ca/disabilitystudies or call: 403-410-1402
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Spring and Summer Camps
Offered at Collicutt Centre
By: Louise Schutte
“My son comes to a few different camps here
and enjoys them all. The leaders help make the
camps fun for the kids. My daughter always
says good things about the leaders.” – Parent
comment card.
Spring is in the air; and it’s time for parents
and children to think about what type of
camp they are interested in for this spring and
summer. Red Deer’s Collicutt Centre offers a
variety of day camps to children between the
ages of three and 12. Camp activities involve
fun and excitement as children play games,
do crafts, swim, and climb - depending on
which camp you choose. Collicutt Centre
campers will experience many of the great
activities the Centre has to offer. Parents
can be assured that experienced, organized,
and energetic staff will make sure your child
has a day camp experience to remember.
“There are themed preschool camps that
provide a variety of experiences for them from
active play in the soccer pitches to tactile,
open-ended play in the preschool program
room,” says Karen Cramer, Dryland Program
Leader. “The school-aged children have many
different choices that range from themed
Camps to specialty or sport specific options.”
Collicutt Centre staff is well trained, and
welcomes inclusion of all children. “Our staff
comes to us with a variety of backgrounds
in education, early learning and childcare,
as well as sport and recreation. During their
extensive orientation we ensure that they are
well equipped to offer quality camps for all
children who attend.”
Many of the children at the Collicutt Centre
camps are repeat participants from previous
years. “We often have children participate
from age three right through to age 12 in our
Camps. This is a great experience for them,
and it builds their confidence. Our camps
are based around the High Five® principles of
healthy child development which ensures that
they have a fantastic camp experience. These
principles ensure that each child’s experience
includes friends, participation, caring
adults, mastery, and most importantly play!
Children return year after year.”
Children partake in a variety of activities
based on their age range. “Our three- to
five-year- old participants spend time in our
preschool program room where they have
opportunity to paint, play in the sand or
water, do crafts, and enjoy our preschool toys.
Weather permitting, they will finish the week
with fun outside on our inflatable waterslide.
Collicutt Centre
Summer Camps
Preschool Day Camps 3- 5 years (1/2 day)
Choose morning or a�ernoon for a fun lled camp
experience your child will love! We have weekly camps
with lots of fun ac�vi�es for your child to enjoy!
In Person - Collicu� Centre
3031-30 Avenue, Red Deer, AB
School Age Day Camps 5-12 years
Full or Half Day - our weekly camps are sure to keep
your child busy this summer! Experience all that our
facility has to offer including the water park, playground, park area and even off site ac�vi�es! Early
drop off & late pick up is available.
Enjoy a fun lled summer at the Collicu� Centre ! Online - www.reddeer.ca/looknbook
Phone - 403-358-PLAY (7529)
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“The 5-12 year olds may climb, swim,
Parents’ comments have been very positive
The Spring/Summer 2014 Community
do gymnastics, use Sky ball, play games,
to Collicutt Centre’s camps. Many provided
Services Activity and Program Guide is
participate in sport activities, do crafts, as
feedback about awesome leaders; a good
available for viewing online. Registration for
well as on occasion go to Discovery Canyon,
variety of activities offered; and that their
City programs in the Spring/Summer 2014
and visit other areas of the City as we teach
child had a lot of fun at the camps. One
Activity Guide opens March 18th. Parents
them how to “Go Green” by using transit.
girl’s parent wrote, “This is our third year
are encouraged to register online, by phone,
The children who register in Specialty Camps
participating on a summer camp at the
or in person at Collicutt Centre, G.H. Dawe
will specifically focus on the described sport
Colllicutt and my daughter has enjoyed them
Centre and the Recreation Centre.
or activity while still participating in some of
all. She LOVED dressing up as a superhero
For more information, please visit the
all week! Keep up the great work!!”
website at www.reddeer.ca/collicuttcentre
the wonderful amenities that the Collicutt
Centre has to offer.”
or call (403) 358-PLAY(7529).
Give your child a memorable life
changing experience this summer!
Camp Fun’zAmust is a residential summer camp
that creates opportunities for children and young
adults with disabilities and special needs
to connect, grow, and belong through
friendships and outdoor activities
experienced at Easter Seals Camp Horizon.
Young Adult July 6 - 12
Children and Teens July 27 - August 2nd
Call Between Friends at 403 269 9133 or
Easter Seals Camp Horizon at 403 949 3818
to learn more.
betweenfriends.ab.ca
easterseals.ab.ca/camp
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Camp Fun'ZAmust: A summer camp story for the child who doesn’t fit the summer camp mold.
Summer is a time of carefree days, hours
spent outdoors and endless time to connect
with buddies outside. Or is it? What if your
child doesn’t fit the typical mold and carefree
is a foreign concept in your home? The idea
of hanging out with buddies is still something
we dream of for our child, and time spent outdoors is simply unpredictable, inaccessible,
and daunting. While other families schedule
their summer around trips to the lake and
summer camp schedules, we are left to continue our fight to find ways that our daughter
can experience the “carefree days of summer”.
Our daughter Sara has special needs
which means that the simplest things can be
a struggle for us. Sleepovers, birthday parties
and camping trips have been foreign concepts
for her and by extension for our family. Because our daughter is limited in her mobility
and can easily be overwhelmed by new experiences, we often see the world as many closed
doors and obstacles.
It wasn’t until we attended Camp
Fun’zAmust at Easter Seals Camp Horizon
that our eyes were opened to the possibilities
that existed for Sara and for us as a family. We
would never in our wildest dreams have imagined that summer camp was something that
she could experience. For years we even tried
to downplay how much fun her siblings were
having at camp to avoid her feeling left out.
Hearing from a friend that Camp Horizon
and Between Friends hosted kids with special
needs sounded too good to be true. Surely
they couldn’t possibly mean a child like Sara.
Special diet, lack of independence, complex
medications and frequent outbursts that result
in stares and judgment, surely they don’t really
mean us…
So with great trepidation and the expectation that we’d be disappointed we proceeded
with signing our daughter up for a week of
Camp. When the fateful week in July arrived
my husband and I were both struggling with
worry and guilt. What were we thinking,
sending her away to camp for a week? Could
they possibly understand all of her needs and
ensure that she was taken care of? But knowing that this week would provide a very special time with our other kids helped to push
us forward. We made plans to camp nearby
so that we’d be close when the camp called
to tell us that she was too much for them to
handle. Plus camping was something we had
never done as a family and we looked forward
to experiencing something new too.
We dropped our daughter off at camp that
Monday morning into the care of energetic
fresh-faced counselors who seemed more excited to see our daughter than anyone we had
ever met. They had an amazing way with her
right off the bat which released in her an excited smile that melted our hearts. While we
went over every detail of her application form
with the staff and nursing team, we could hear
her giggling at whatever inside joke the clever
counselors were sharing with her.
Reassured that the camper to staff ratio
would be 3:1 or 2:1, assured that her special
diet was no problem and guaranteed that
the staff were fully equipped to handle her
behaviours the only thing left to do was to
take a look around. By all accounts this place
looked exactly like what any summer camp
should look like. Climbing gear, life jackets
and paddles, a pool and spectacular campfire
setting, there was an energy and excitement
in the air that was astounding. Once settled
into what would be her bunk it was obvious
that it would be time for us to leave. Perhaps
the hardest thing we’ve ever done was driving
away that day.
But as we settled into the business of getting our camp site selected and set up, the
sting of having left her behind hurt a little
less. The four of us slipped into a version of
happiness that felt different and with less guilt
than we had anticipated. We were unwinding, relaxing, and connecting in a way that
we hadn’t done in ages. Our days of camping
weren’t perfect and certainly weren’t without
challenge but there was something nice about
facing challenges together that were so different than those we face every day. We laughed
and we argued the way we always do and it felt
ok to be just the four of us.
As Saturday drew nearer we all were growing in our excitement to see Sara and to tell
her all about our own camping adventure.
We arrived at camp amidst the busyness of
other families arriving too, many with looks of
nervous anticipation like us but many with a
confidence that I recognized must come with
a seasoned camp-kid.
When we first spotted Sara she was in the
throes of a deep, belly laugh, head back, mouth
wide open. The sort of laugh we hadn’t seen in
ages. She looked truly delighted, surrounded
by a group of kids all wearing the same scruffy,
happy look of a fantastic week at camp.
We know that what she experienced that
week was beyond any of our wildest dreams.
She connected with nature in a way that seems
to have resonated deep in her being. We have
discovered that being outdoors gives us all a
peace we were missing. During this short week
at camp Sara discovered a confidence none of
us knew she had. She holds her head up higher
now and smiles brighter. When we asked if
she’d like to return in the fall for a retreat the
smile she rewarded us with lit up the room.
Leaving the camp that day felt special, like
we were leaving friends we’d had forever. Other parents who truly relate to what life with a
child with special needs is like gave us a knowing grin, like we’ve just been welcomed into
a magic club where our child found a sense
of belonging and acceptance she had only ever
known within our family. That this feeling
could exist in a wonderful place tucked into
the woods felt like a miracle. And these people
we’ve met have become family.
The anticipation of when Sara can go back
is already growing. And for my husband and
our other kids, we know that every summer we
will have a special week together where maybe,
just maybe we might have as much fun as Sara
is having! It turns out that to experience the
joy of summer camp for a child who isn’t typical just takes finding a special place that is far
from typical too.
Easter Seals Camp Horizon runs specialized camp programs, for youth and adults
with disabilities, year-round. They have partnered with BetweenFriends to offer two weeks
of Fun’zAmust for children, teens and young
adults. Visit their websites easterseals.ab.ca/
camp and betweenfriends.ab.ca to discover
which week is best suited for your child.
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DiscoverE Camps at the U of A
With summer soon upon us, parents are
looking to find the camp that is the right fit
for their child. The engaging summer programs offered by DiscoverE provide a unique
experience to children and youth of various
skill levels and have had extremely positive
feedback from parents. Based out of the University of Alberta (in Edmonton), DiscoverE
is a student-delivered initiative of the Faculty
of Engineering that fosters fun, accessibility,
and mentorship.
“While our camps generally promote Science, Technology, Engineering, and Math
(STEM),” explains Alissa Boyle, Camp Director, “we offer camps that address a wide
range of topics. Whether the child already has
a passion for a specific STEM topic or they
are just beginning to explore the tremendous
opportunities that STEM provides, our camps
are designed to challenge and inspire youth of
all backgrounds.
“DiscoverE camps aim to provide authentic learning opportunities for all youth. The
camp experience is especially beneficial for
children with special needs because it provides
an opportunity to interact with other participants and build relationships thus increasing
their confidence and communication skills.
In addition, our instructors are inspiring role
models for all participants and our hands-on
approach provides an interactive experience
for youth to attach their learning to.”
All of DiscoverE’s staff members learn
about various exceptionalities and inclusion
throughout their rigorous camp training program. “Many of our summer staff have
previous experience with children with a
range of special needs. We also recognize that
the parents/guardians of the children are our
best resource, and welcome any specific techniques that work best with their child.”
DiscoverE’s summer camps cover a range
of STEM topics for students from Grade 1
– 12. Mini camps are geared towards Grades
1 and 2 and are mainly focused on STEM
FUNdamentals. Here children learn from
games, challenges, and stories as much as
possible. Junior camps, Grades 3 and 4, are
focused on nurturing campers’ inquisitive
minds and exploring the science that can be
found all around us. The aim of Intermediate camps, Grades 5 and 6, is to have campers
connect various concepts that they have previously learned and apply them to real life. The
Senior camps, Grades 7 - 9, are designed to
challenge youth and encourage them to use
creativity and problem solving skills.
“Our high school program, Leadership
and Engineering Applications, Projects, and
Possibilities (LEAPP), is more career-oriented,” says Boyle. “This program aims to promote engineering as a potential career through
an “Amazing Race” style series of challenges.
“Because we have been around for over
twenty years, we are now beginning to see the
tremendous impact that we have had on some
people’s lives. We are quite often approached
by high school, undergraduate, and even
graduate students who were previous campers; many of them attribute their initial interest in their respective fields to a DiscoverE
program. Additionally, a few of our Summer
Instructors, who are Science and Engineering
students, were past campers!”
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We are quite often approached by high school,
undergraduate, and even graduate students who
were previous campers; many of them attribute
their initial interest in their respective fields
to a DiscoverE program.
27
Engineering, science, technology &
mathprograms for youth in grades
1-12 through July and August.
Register online today!
Those who live in remote areas are also able to take advantage of
the camp experience. Though based out of the U of A, DiscoverE also
travels to over 70 remote and rural communities throughout Northern Alberta and the Northwest Territories! Visit their website, www.
discovere.ualberta.ca, for more information on which communities
DiscoverE is visiting this summer.
The majority of DiscoverE camps run for five days and cost $225.
Camps that fall on a four-day week, due to a holiday, cost $200. This
fee covers early drop-off (8:00 - 8:30 am), late pick-up (4:00 - 5:00
pm), all project supplies, as well as a pizza lunch on Friday. This cost
also includes accommodation and/or field trip fees, where applicable.
“DiscoverE strives to break barriers and provide opportunities to
all youth,” Boyle adds. “Because of this, we also offer full and partial
bursaries to families that demonstrate financial need. More information about the bursary application process can be found on the following link: http://discovere.ualberta.ca/en/Camps/Bursaries.aspx
Parents and their children are more than welcome to visit our
camps at any time.
Registration for our summer camps is currently open and is filling
fast!”
The deadline for bursary applications is June 1st for camps that are
run in July, and July 1st for camps in August.
28
Resource Magazine
Clinical Services U of A
By: Louise Schutte
Through its Education Clinic, the Department of Educational Psychology at the University of Alberta provides affordable services
to the public. The Education Clinic promotes
professional development and research by providing graduate students with quality training
experience in the areas of psychological assessment and counselling.
Assessment Program
“The University of Alberta Education
Clinic is proud to have served the Edmonton
community for over 25 years, offering services
for families, children, and adults with psychology needs,” states Dr. Martin Mrazik, Director of Assessment. “As a training institution,
our psychology services [are] often conducted
by graduate students who are carefully supervised by experienced and registered psychologists here in the province of Alberta.
The Assessment Centre accepts referrals for
educational, psychological, career, and personality appraisals. Assessments of clients begin
at age six and up, and referrals to the assessment program are accepted from any source.
Testing usually begins in mid-October and
ends in April.
“Our services include psychoeducational
assessments of children, youth, and adults
who present with learning and academic difficulties. Our goal is to provide intensive,
individual assessments to address presenting
concerns and provide evidence-based practices to help facilitate success. In addition, the
Education Clinic specializes in clinical psychological assessment of at risk populations
such as those with significant behavioural or
psychiatric difficulties like depression, anxiety,
post-traumatic stress, brain injury, bi-polar
disorder. Finally, psychological assessments
are also offered to address career and vocational needs. These assessments provide a detailed
overview of cognitive potential, academic
functioning, personality traits, and career options that are a fit for the interested client,”
Dr. Mrazik declares.
Counselling Program
The counselling centre accepts referrals
for individual, marriage, and career counselling for adults as well as family therapy and
play therapy for children. The counselling
Clinical Services, Department of Educational Psychology
Offering lower-cost psychological services to
the community.
Services administered by graduate student
clinicians, including personal counselling and
assessments.
Fee reductions may be available for those in
serious financial need.
Problems? We can help...
For further information, please contact the
clinic at 780-492-3746.
2010 acknowledging community involvement and
diversity in the work place; Calgary Board of Education
Lighthouse Award 2001 ‘First Ride’ educational
program; 2007 Top 15 Vibrant Companies to work for;
2007 Employer Choice Marketing Awards; 2007 Mayor’s
Award of Excellence and more!
covergo a‘round
variety
So centre’s
the next specialized
time you see services
a bus’ wheels
of issues and clientelle which range in age
and round’ check Southland out on-line for your next
from preschool to the elderly. Referrals to
superior
experience
to school,
for corporate
thistravelling
program
are accepted
from
any source
needs,on
special
needs,
special
occasions
or
a fun family
a first-come first-served basis.
trip.
“The Faculty of Education Clinic deliv“Toersexceed
customer expectations by employing
intensive practical training and supervitalented
who share
in master’s
the dedication
of a
sionpeople
for students
in the
and doctoral
company
to safety
and service.
levelcommitted
practicum
courses
in the” Counselling
www.southland.ca
Psychology, Clinical Child, and School Psysays 455-8222
Dr. Sophi Yohani,
14976chology
-114 STprograms,”
Edmonton (780)
Director
of Calgary
Counselling.
“Counselling
823 Highfi
eld Ave
SE (403) 287-1395
services are offered to the public, and include individual, family, couples, and child
counselling. We also provide vocational assessments and career counselling. Student
clinicians work under the close guidance of
registered psychologists who have extensive
experience and a wide range of areas of expertise.
Certified Professional Organizer, Stacy Walker CPO®
“Examples of issues that can be addressed
at the Education Clinic are depression, anxPlease
or check the web
site for
information
iety,call
relationship
issues,
parenting,
and life
about Clutter Crushers Support Group
transitions,” she continues. Because this is
a training facility, our student clinicians are
not able to see individuals with severe menwww.gettinaroundtoit.ca
tal health conditions that require [email protected]
ate/crisis supports, such as active psychosis
and severe depression/suicidal ideation.
Specializing in extreme CLUTTER and HOARDING
780-717-1745
resource magazine
To book an appointment at the Education Clinic, phone 780-492-3746. There
can lengthy waiting lists for some services. Please call the clinic for current information
on wait times.
www.assembly.ab.ca
Resource Magazine
H ONOURABLE D AVE H ANCOCK ,
29
MLA
Edmonton Whitemud :: Minister of Education
203, 596 Riverbend Square
224 Legislature Building
A non-profit independent school
located
on theT6R
beautiful
RiverAB,
in Calgary,
Edmonton,
AB, Canada
2E3 Bow
Edmonton,
Canada T5KAlberta.
2B6
Accepting new registrations: Junior K-6, 2010 - 2011
Tel: 780-413/5970
Tel: 780-427-5010
Junior Kindergarten - 8:45 AM - 11:45 AM five days a week
Fax: 780-413-5971
Fax: 780-427-5018
Hon.
Cal Dallas
Kindergarten - 8:30 AM - 3:15 PM five days a week
MLA-Red Deer South
Minister of International
Intergovernmental Drive
Relations NW,
3127&Bowwood
Alberta T3B 2E7
Email:Calgary
[email protected]
#503,403.246.2275
4901 - 48 Street Fax: 403.686.7631 [email protected]
Telephone:
Red Deer, Alberta T4N 6M4
Phone: 403-340-3565 Fax: 403-346-9260
....bringing you home!
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p:
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Kidsnotes Music & retailc:store
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“We are equipped with a state-of-the art
play therapy room, which allows us to offer
play therapy to children between the ages
Production:
Fall 2010
of four-years and 12-years.
Family involveCity of Edm_Waste Mgmnt
ment is key to theAdvertiser:
success of counselling
children, and therefore
close collaboration
Ad Size:
Business Card
with caregivers is incorporated
Proof: into all treatFirst
ment plans. The director of the counselling
• non-commercial
centre• non-profit
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Please
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box.
ClEARlY
mARk All
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tive during
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of September
and April,”
• low membership
/one meeting
free Dr. Yohani• 1-800-932-8677
concludes. • www.tops.org
The assessment and counselling fees continue to represent the lowest available costs
in the city and are substantially lower than
professional rates. Clients who have reduced
financial resources will be able to apply for a
fee reduction or waiver. Waiver requests are
subject to an application process, which requires documentation to be provided upon
request at the point of referral. Fax: 780-963-1730
Toll free: 1-888-501-0507 • Ph: (403) 201-0507
Web: www.aasra.ab.ca
Earl Dreeshen, MP (Red Deer)
q
q
q
PROOF SATISFACTORY (no changes
PROOF SATISFACTORY (with change
REVISED PROOF REQUIRED
ADVERTISERS SIGNATURE:
4315-55th
Avenue, Suite 100A
DATE:
Red Deer, Alberta T4N 4N7
Phone:
This colour(403)
proof is 347-7426
only representational of the actual colo
Fax:
(403) 347-7423
www.earldreeshen.ca
FALL 2011
::
29
Funding equipment for children and young adults
with disabilities throughout Northern Alberta
www.childrensabilityfund.ca | 780.454.9191
30
Resource Magazine
Coverage for diabetes management supplies for eligible Albertans
If left untreated or not properly managed,
diabetes can lead to serious complications
such as heart attack, kidney failure, stroke,
and blindness. Regular blood glucose testing
is an important part of diabetes management
to prevent or delay the onset of these complications.
The Alberta Monitoring for Health Program
(AMFH) is funded by Alberta Health Services
and administered by the Canadian Diabetes
Association. The program helps to provide
funding for basic diabetes supplies such as
blood glucose test strips, lancets, insulin pen
needles, and syringes for low-income Albertans without insurance coverage for diabetes supplies. The benefit year starts April 1st
and depending on how an individual manages
his or her diabetes, coverage is as follows:
Insulin Treated: Albertans under age 65
can access a benefit of $600 per year for basic
diabetes supplies.
Oral Medications: Albertans can access a
benefit of $250 each year for blood glucose
test strips and lancets.
Diet and Exercise: Albertans can access a
benefit of $100 each year for blood glucose
test strips and lancets.
As of July 1, 2012 insulin-treated seniors
from AMFH were transferred to receive coverage for basic diabetes supplies as part of the
Alberta Blue Cross Coverage for Seniors’ supplementary health/drug plan.
Gestational Diabetes Mellitus
(GDM)
New coverage is also available to Alberta
women with insulin-treated gestational dia-
betes who have no insurance coverage for
diabetes supplies. Gestational Diabetes Mellitus (GDM) is a condition that occurs during pregnancy when the body cannot produce
enough insulin to handle the effects of a growing baby and changing hormone levels. Women may qualify for up to $600 per pregnancy
for blood glucose test strips, lancets, insulin
pen needles, and syringes.
Once approved for assistance from the
AMFH Program, all recipients will receive a
benefit card in the mail. This card should be
presented to a pharmacist when purchasing
diabetes supplies.
Information and applications are available
by calling the Alberta Monitoring for Health
Program Office at 1-800-267-7532 or online at diabetes.ca (enter “Alberta Monitoring
for Health” in the search box).
Assisting low-income Albertans
without insurance with the cost of
diabetes testing supplies.
Alberta Monitoring for Health Program
1-800-267-7532
diabetes.ca
(enter “Alberta Monitoring for Health” in the search box)
Resource Magazine
31
Money: When “Mine” Becomes “Ours”
Let’s face it: We get up every day and we
all engage in an activity in which we work towards the by-product of money. How we treat
that money after we earn it will determine our
lifestyle, goals and in some cases, our peace
and happiness.
Now, don’t get me wrong. I’m not saying
that money equals happiness. I did say that
money would support the type of lifestyle that
you may choose; and if you have a lifestyle
that is in alignment with your happiness then
yes, money is part of the equation.
What does money mean to you? For some,
money represents financial freedom. For others, it causes stress and strife. When you think
about money, what feeling does it evoke? Is
it possible that your feelings towards money
stem from how your family communicated (or
didn’t) about money?
Some questions you may want to
consider:
• How did your parents treat finances
overall?
• Did your Dad work and solely pay the
bills in your family?
• Did both your parents work but one parent was responsible for handling all the
finances?
• Were both your parents responsible for the
bills and money jointly?
• Was money ever discussed?
• Did you and your significant other discuss
money?
• How do you treat money today?
• Do you have goals and work toward those
goals together?
I’ve had the privilege of working with
many couples over the years and this has given
me a bird’s eye view of money and relationships. I’ve seen many types, ranging from
those who treat their money as a partnership,
to those who have one person in the household responsible for all the money, to both
parties taking no ownership whatsoever.
Those that treat their money as a partnership are very clear with each other regarding
their goals and are financially committed to
their future together. They make joint decisions and work toward common goals. Many
times, they incorporate what is set up as the
“mine”, “yours”, and
“ours” accounts. It’s
okay to have your
own accounts but it is
equally important to
have joint accounts,
as well as setting
short-term and longterm goals. Having
a common vision will
create a closer relationship and more
success for a comfortable retirement.
• Did your family always seem to be chasing
money, or did money seem to be in
abundance?
Answering these questions undoubtedly
affects how you treat your finances today.
I also know that
no matter what your
household income,
it’s no reflection on
your net worth. I
have seen couples
whose
household
income is under
$100,000 a year have
a stronger net worth
than couples whose
income is close to a
quarter of a million
dollars.
Going forward, before entering into the
union of marriage, or beginning a serious relationship, I’d ask you to consider:
Why is that?
Some people are clear
on their goals and
• If money was discussed, were the conversations good or bad? Did emotions run
high?
• Did your family ever talk about families
that appeared to have more than you, or
did your family seem perfectly comfortable with what they had?
spend money that aligns with those goals.
They communicate with each other about
how they want their money to work for them.
Below is a strategy that has been very successful for many couples that I have worked
with:
1. Create a partnership with money. Set
goals, both short- and long-term.
2. Openly discuss where your money
is going. All couples have things they
purchase that may not make sense to the
other person. Find a common ground,
and be fair and honest about your
spending with each other. Buying shoes
is not a good idea if you haven’t followed
your agreed-upon budget, your savings
is dwindling, and you’re not meeting the
goals of the household. Of course, it is
okay to reward yourself if you have met
all of your goals.
32
Resource Magazine
3. Create a budget. How much are your
paycheques after taxes and deductions?
This is your net amount. What are
your expenses? Are there areas where
you could reduce spending? Consider
eating out, coffee, entertainment and
shopping, even buying your groceries
with the mindset of increasing your savings. How you calculate this is to go
back through your bank statements and
credit card statements. Put each spend
into a category. And most importantly,
do this together.
4. Figure out your net worth. Take your
assets: accounts, investments, vehicles, property and other items, such as travel trailers, etc.
Subtract your liabilities: Credit card balances,
loans, mortgages, etc. Assets, minus liabilities,
equals your net worth.
This is where you start as a couple, but
where do you want to be in your financial future? Whatever you are doing today, does it
align with your financial goals? What I can
tell you is if you have good communication
as a couple, work together and celebrate together, you will be happier, closer, and have a
future that you built together.
Here are some quick tips to start you
saving money today:
• Create a weekly menu, engaging the
whole family in meal preparations. Challenge the family to create meals under
$20. Each night, assign one person in
the household to cook, and the others are
responsible for clean up. Our lives are
busy - with sports, meetings, committees,
work, family, etc. If you take one hour
on Sunday and plan what you are going to eat each night and purchase your
groceries ahead of time, you will save
money, eat healthier and have more time
together as a family. You are also creating
healthy habits as a family. Cooking is fun
and healthy.
• Take a “to-go” cup of home brewed coffee
to the office; you’ll save yourself $2 -$5
a day on the way to work by taking your
own coffee or tea. You will also save 5 –
10 minutes a day. Just think: In five days,
that is 50 minutes you’ll get back, close
to an hour; and you could save as much
as $25 a week . . . x 52 weeks = $1300.
WOW!
• When shopping for clothes, I suggest a
cool down period. If you see something
you like that would complement your
current wardrobe, walk away. Yes, I said it;
walk away. If you still need it in an hour,
or six hours, or the next day, then go back.
Impulse shopping can cost you hundreds
to thousands of dollars on purchases that
you don’t always need.
• Only use cash, not credit. If you are
buying something, ask yourself how you
will pay for it. If you are putting it on
credit and not paying off your credit cards
monthly, then you are paying twice or
even more than what the item is worth.
Ask yourself: Would you pay $250 for
Understanding you is as
important as knowing the law
Plan your estate today.
Our Wills and Estates team is client-focused and experienced.
It’s the kind of legal counsel you want.
Our Services Include:
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Edmonton
Wanda Fawcett
780.426.5550
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bishopmckenzie.com
Resource Magazine
a pair of jeans that are on sale for
$100? I would hope not, but if you are
purchasing those same jeans on credit
and not paying them off, you are doing
just that. And by the time you pay the
$250 for those jeans, how much do you
think those jeans will be worth?
• Pay yourself first. When you receive
your paycheques, always pay yourself
first. Have money transferred automatically into a savings account and
then live off the rest. If you don’t have
it, you won’t spend it. You’ll be amazed
how fast your money will grow.
• If you are renting, consider if
homeownership might be right for you.
The majority of most people’s wealth
comes from their real estate. Be sure
to hire a team of professionals to guide
you.
And lastly, know the difference between
needs and wants. Ask yourself, “Do I need
this, or do I want this?” Question whether
purchasing that item will align with your
goals and if it’s a good investment.
33
Steve Young, MLA
Edmonton - Riverview
Making a difference with support,
services and strategies
Constituency Office:
9202B - 149 Street
Edmonton, AB T5R 1C3
P. 780-414-0719
F. 780-414-0721
[email protected]
specialized services, respite,
groups, education sessions,
facility rentals, etc...
www.childrensautism.ca
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(780) 495-9235
Teach your toddler
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Your Calgary Catholic Bookstore with a
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403.240.0184
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• N on-profit Home and Community
Based Early Education Program
• Provides individual programs for
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11024 - 127 Street, Edmonton, Alberta T5M 0T2
Phone: 780.452.9513 Fax: 780.452.1902
E-mail: [email protected]
6415 Ranchview Drive NW Calgary, AB T3G 1B5
T: 403 239 8072 F: 403 374 2068
www.creativebeginnings.ca
• 1 -1 support in community and preschool settings
• Provides consultation in the areas of SLP, OT, PT,
Education, Psychology, Vision Support and Adapted
Physical Education
For more information visit our website at
www.gritcalgarysociety.com
Phone 403.215.2444 or email at
[email protected]
34
Resource Magazine
Register Early with
Walk Now for Autism Speaks Canada
By: Louise Schutte
This year marks the 10th Anniversary of
Walk Now for Autism Speaks Canada, the organization’s most powerful national fundraiser, and on September 14, 2014, Edmonton’s
seventh installment of Walk Now for Autism
Speaks Canada taking place at Rundle Park.
“This is a pledge-based fundraiser; there
is no registration fee to sign up for the walk”
says Sherrie Cameron, Regional Walk Manager, Alberta and Saskatchewan. “Teams
and individuals can register for the walk at
www.walknowforautismspeaks.ca and are encouraged to fundraise within their communities and get creative. All walkers that raise
$150 or more get the official Walk Now for
Autism Speaks Canada shirt and all participants that raise $1,000 or more become members of the Grand Club with exclusive on-site
perks and benefits.”
Cameron is passionate about the Walk and
Autism Speaks Canada because she believes
in putting money back into the community
through Family Services Grants, Advocacy,
Awareness, and Science and Research. “In
2013, Autism Speaks Canada granted over
$700,000 to Science and Research and over
$475,000 for community-based Family Services,” declares Cameron. “Another goal at
Autism Speaks Canada is to identify and support promising research with the hope that re-
sults from these efforts will produce significant
findings that will be reported in peer-reviewed
journals. We also hope that grants we fund
will lead to additional research support from
government or other funding agencies,” Cameron adds.
But, there is still more work to be done.
Edmonton’s walk had seen steady growth until 2013 when registration was down 30%.
This decrease in participants was reflected as
a decline in the total fundraising revenue as
well. “We are working hard to reach our target of $250,000 for 2014, and we need the
support of the community,” Cameron encourages.
Everybody Wants to be Heard
7th Annual Edmonton Walk
Sunday, September 14th, 2014
Rundle Park, Edmonton, Alberta
Check In Time: 9:30 am | Walk Start: 11:00 am
For more information: 1.888.362.6227 • Email: [email protected]
To Register: www.walknowforautismspeaks.ca
NATIONAL SPONSORS:
Autism Speaks Canada is a registered charity #869420208 RR0001
Autism Speaks and Autism Speaks It’s Time To Listen & Design
are trademarks owned by Autism Speaks Inc. All rights reserved.
Resource Magazine
This year’s Walk Now for Autism Speaks
Canada has a new spokesperson: Hunter
Bondy is a 12-year-old boy who was diagnosed
with autism when he was 3 ½. He loves to
do things with his family like taking gymnastics with his sister, Lola, going fishing with his
dad, and spending time with his mom. “I
am so excited to walk in the Walk Now for
Autism Speaks Canada walk with my Uncle
Steve,” Bondy exclaims.
The Walk in Edmonton takes place at
Rundle Park on September 14. Registration
start time is 9:30 a.m., and the Walk officially
starts at 11:00 a.m. The walk also includes
the Autism Services Resource Fair, Toys”R”Us
fun tent, Interactive Fun Zone, lunch, and entertainment for the whole family. Participants
are encouraged to invite their friends and family to the walk and the organizers promise
great attractions for all ages.
“Experience the power of thousands united by a single cause by joining Walk Now for
35
Autism Speaks Canada. Autism is the fastestgrowing serious developmental disorder – we
need more walkers, sponsors, teams, and volunteers to join us as we try to find the missing
pieces of the autism puzzle,” Cameron summarizes.
For more information contact Autism
Speaks Canada at
Phone: 1-888-362-6227 Ext# 210
or at [email protected]
At Shoppers Home Health Care we are focused on providing Canadian
families with the most complete selection of specialty home health care
products and services, tailored to meet specific needs for health recovery
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From custom modifications of seating and mobility equipment to Wheelchair
Vans, or simply, aids to improve daily living, Shoppers Home Health Care is dedicated
to providing you the best and most affordable solution. Our team approach supports
the recommendations of health care professionals and makes certain that each individual achieves and maintains the highest level of independence and comfort possible.
Our extensive collection of pediatric equipment paired with our years of experience working with families and children with mobility needs, gives us a great
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36
Resource Magazine
Venturing Forward
Photo: Pedersen
By: Deborah Barrett
Two months before my son, Anthony, was
to graduate from high school, I had a very
scary nightmare. I dreamt Anthony died. It
was a terrifying dream, but, as a former psychotherapist, I knew this dream was about my
fears for Anthony’s future.
For most families, high school graduation
is a time of achievement, pride, looking toward the future, and maybe a little bit of relief. Maybe our graduates will go on to further
education or employment training. Maybe
they will get a job or take a gap year. We see
our kids moving out, getting careers, finding
partners, and eventually starting families of
their own.
For us, it was different. Anthony has significant autism. That meant there was no
more school for him to attend after high
school. He was not going to go on to work,
to have a career, or to start a new family. There
were no available spots in any day programs,
no educational options, and no employment
training opportunities for Anthony. Resources
for adults with autism, or other developmental disabilities, were extremely limited then
and they remain so across Alberta. Even where
they exist, programs are not always of the calibre families would choose for their loved ones.
Few adult programs, if any, are geared for the
way people with autism learn.
Without school, there was a big void. We
were staring at being personally responsible
for figuring out how to occupy every minute
of every hour of every one of Anthony’s days
for the rest of our lives and beyond. It was
overwhelmingly frightening.
Anthony, however, was undaunted. Speaking is very hard for Anthony, but he made sure
we knew what he wanted: “New school,” he
would say, “grade 14, grade 15. New school!”
We heard this many times a day, day after
day, week after week. Anthony forced us to
create something out of nothing. Eventually,
we went to NorQuest College and, after some
talks, enrolled Anthony in their Adult Literacy
Program. He loved it, and he was successful!
But we knew Anthony would need more
than school. Eventually, he was going to need
a job. So we started thinking about what he
likes to do: driving around listening to music,
helping people, carrying things, checking out
new places but not staying very long.
When Mike Hamm, Anthony’s assistant,
suggested he could do deliveries, it clicked.
Deliveries are special, and special people can
do deliveries. You can ride around, carry
things, help people, and move on. It was perfect!
So, Mike made a video to show potential
customers that Anthony could do real jobs
that would make a difference. When he put
the video, called "Meet Anthony", on YouTube, it went viral. There was so much goodwill toward Anthony that it launched his little
delivery business called Anthony at Your Service.
It’s a good thing it did, because this spring
NorQuest’s Adult Literacy Program was cut.
There is no more school for Anthony right
now.
Anthony at Your Service gives Anthony
something to do that keeps him in the community doing real work, for real businesses,
for real money. It gives him purpose, and it
helps him have a good and balanced life. Anthony delivers birthday cakes; takes packages
to the Post Office for mailing; picks up groceries; delivers lunchtime sandwiches; drops off
and picks up shirts for dry cleaning; delivers
photographs, gift baskets, balloons, tailoring,
orthodontic moulds, advertising, and more.
In fact, Anthony will pickup or deliver anything that can fit in a car.
This fall, Anthony at Your Service had
more jobs than Anthony could do at one
time. So we’ve found other adults with autism and intellectual disabilities to do the
jobs that Anthony cannot do, either because
he doesn’t have the time or because he doesn’t
have the skills. Andre Boutin, a 20-something
man with autism, found himself postering on
Whyte Avenue this fall because that job didn’t
fall within Anthony’s abilities.
Businesses often have small, but regular,
jobs that don’t have enough hours for a full or
half time employee, but need to be done on a
daily or regular basis. These are perfect jobs for
adults with developmental disabilities. So are
jobs that individual citizens may have: walking dogs, taking items to recycling or to vari-
www.anthonyatyourservice.com
ous charities, dropping off a birthday cake or
bottle of champagne for a loved one. Anthony
at Your Service is always open to new, interesting ideas that we may not have anticipated.
What’s clear from our experience is that
Edmontonians are definitely open to hiring persons with intellectual disabilities, but
sometimes people are afraid to do so because
they don’t want to do something wrong. Hiring Anthony at Your Service makes it easy
to be inclusive, because a knowledgeable assistant accompanies each adult. If there is a
unique behaviour, the customer doesn’t have
to worry about how to respond. The assistant
will model an appropriate response. Also, hiring Anthony at Your Service gives some small
businesses the opportunity to be inclusive
without the need to re-jig the workplace or
devote staff time to supervision of an employee with an intellectual disability.
Apart from being inclusive, what are the
benefits? Guy Thaller, Manager at Val Berg’s,
says, “We don’t use Anthony at Your Service
out of a sense of charity. We use Anthony
because he’s capable. Anthony isn’t going to
lose the merchandise. I know he will deliver it
straight from the store to our customers. Anthony at Your Service is very reliable.” Sherry
Kohlman, Office Manager at Shores Jardine
LLP, also likes the fact that she can build a
relationship with one particular delivery team.
She’s enjoyed getting to know Anthony and
Cathy MacKay, who also does Shores Jardine
deliveries for Anthony at Your Service.
That’s a benefit to everyone. Adults with
autism and developmental disabilities get
out in the community. They get known for
providing quality services. They get paid,
and they build relationships. Businesses benefit from receiving high quality service from
people they know they can trust, and whom
they get to know as individuals. That’s where
truly inclusive communities begin: workers,
businesses, and citizens get used to hiring, interacting with, and getting to know persons
with intellectual challenges who make positive, paid contributions to our city and to our
economy. At the same time, people with developmental disabilities become an expected
and accepted part of our society. Anthony at
Your Service might be a small step, but it’s the
way of the future!
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Spring 2014 - The Resource Magazine

Transcription

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