Worcester Strengthening Healthy Communities
Transcription
Worcester Strengthening Healthy Communities
Worcester Strengthening Healthy Communities Research report Version 1.1 1.2 Date 17 June 2013 1 August 2013 Turning Point Turning Point The Exchange Manchester M1 4HN www.turning-point.co.uk Update First draft: Research findings Author Rosemary Wallbank Final version: Steering committee approved Rosemary Wallbank Worcester Strengthening Healthy Communities – Final Research Report Acknowledgements This version of the report has been produced with comments from the commissioning and steering group. This group is comprised of: Dr Felix Blaine, GP Commissioner, South Worcestershire Clinical Commissioning Group Rosemary Williams, South Worcestershire Clinical Commissioning Group Dr Frances Howie, Department of Adult Services and Health, Worcestershire County Council Helen Perry, South Worcestershire Clinical Commissioning Group Menna Wyn-Wright, South Worcestershire Clinical Commissioning Group Nina Warrington, Worcester City Council Francesca Davies, Worcester City Council Edd Terrey, Worcester Community Trust Katie Carver, Worcester Community Trust Becky Jeynes, Community Champion Marilyn Furlong, Community Champion Gemma Bruce, Turning Point Amanda Preece, Turning Point 2 Worcester Strengthening Healthy Communities – Final Research Report Contents 1 2 3 4 5 Introduction ................................................................................................................................ 4 1.1 Background to the project ................................................................................................... 4 1.2 About this report ................................................................................................................. 5 1.3 Background data................................................................................................................. 6 Community Champions.............................................................................................................. 9 2.1 Building community capacity............................................................................................... 9 2.2 Recruitment and training ..................................................................................................... 9 2.3 Focus on Community Champions ..................................................................................... 10 Questionnaire development and research framework .............................................................. 13 3.1 Questionnaire development .............................................................................................. 13 3.2 Research framework......................................................................................................... 13 Community Research findings ................................................................................................. 15 4.1 Self reported health and lifestyle ....................................................................................... 17 4.2 Health and wellbeing ........................................................................................................ 29 4.3 Long term conditions sub-sample ..................................................................................... 36 4.4 Health services ................................................................................................................. 42 4.5 The use of A&E ................................................................................................................ 48 4.6 Community ....................................................................................................................... 53 Workshops............................................................................................................................... 62 5.1 6 Community asset mapping ............................................................................................... 62 Recommendations to the Steering Group ................................................................................ 64 6.1 Recommendations ............................................................................................................ 64 6.2 Next steps......................................................................................................................... 65 3 Worcester Strengthening Healthy Communities – Final Research Report 1 Introduction 1.1 Background to the project Turning Point was commissioned by South Worcestershire Clinical Commissioning Group (SWCCG) in late 2012 to deliver a 12 month programme of community engagement, service design and social action in Worcester City. The Strengthening Healthy Communities project brings Turning Point‟s Connected Care model to the communities of Warndon, Gorse Hill and Rainbow Hill in the north east of the city. Turning Point is working with residents and front line staff in these areas to look at ways to strengthen the community, improve health outcomes and reduce health inequalities. The project seeks to understand in detail the factors that influence lifestyle choices, health and long term condition management and how people engage with local services. The information in this report will be used to inform the development of a number of proto-type community led initiatives to tackle some of the key health issues locally and respond to the difficulties facing local residents, building on the assets and skills within the community. The emphasis is on developing initiatives that are responsive to the residents‟ preferences, needs and values, encouraging patient centred care in community settings and promoting selfmanagement. As such the project is closely aligned to the objectives of South Worcestershire CCG‟s five year strategy (2013-18). The project is overseen by a commissioning group and steering group, comprised of representatives from South Worcestershire CCG, Public Health, Worcester City Council, Worcestershire County Council, Worcester Community Trust, Turning Point and Community Champions. So far, the project aims have been achieved through the recruitment of a team of Community Champions, local residents whose role involves speaking to others in the community to identify needs and develop community-led support services. A team of 17 local people were recruited and trained by Turning Point to become Community Champions. The Community Champions used a range of research methods such as questionnaires and workshops to explore local assets and needs in the community, engaging with 314 local residents in the process. In addition, Turning Point has also engaged with the wider community to explore existing groups, services and projects. Frontline staff were invited to attend workshops and events to share their views on how to improve health outcomes in the study areas. Following the dissemination and reflection on this report, Turning Point will support the Community Champions and others in the community to pilot a number of community-led initiatives to respond to the issues raised in the research and improve health outcomes. The specification of the initiatives will be informed by a number of service design workshops delivered by Turning Point in July 2013. 4 Worcester Strengthening Healthy Communities – Final Research Report 1.2 About this report The purpose of this report is to present the findings from the community champion led research and from a workshop with front-line staff to inform the development of initiatives in the area that respond to the objectives of the project. The report sets out the context of the project, drawing on background data and existing service provision to set the research findings in this context and to make recommendations based on these understandings. The purpose of the recommendations is to provide the steering group with a starting point for the design of the community led initiatives. Section 1 provides a profile of the study areas of Warndon, Gorse Hill and Rainbow Hill. Section 2 describes the role of the Community Champions. Section 3 describes the data collection process and questionnaire development. Section 4 presents the findings from the community research focusing on: o Self-reported health and lifestyle o Health and wellbeing o Long term conditions o Health services o Use of A&E o The community Section 5 presents details of the workshops and findings from the asset mapping workshop Section 6 makes recommendations to the steering group in response to the findings in report A separate document to this report contains the appendices as listed below. The project is overseen by a commissioning group and a steering group. These groups meet at least twice monthly. Membership of these groups can be found in appendix 1. A list of stakeholders who attended the asset mapping workshop can be found in appendix 2. These included representatives from local doctors‟ surgeries, health trainers, community groups, faith groups, council staff and councillors. Detailed background research into the profiles of the wards of focus can be found in appendix 3. This provides detail gathered from current existing data sources including local area profiles, ward profiles, 2011 census data and the JSNA and expands on the summary of information included in the body of the report in “background data” (1.3). Details of existing assets and service provision in the local area can be found in appendix 4. Information on engagement as part of the research with local organisations and stakeholders can be found in appendix 5. Over fifty different places were visited as part of the research to ensure 5 Worcester Strengthening Healthy Communities – Final Research Report people were given the opportunity to participate from a variety of sources. This included formal groups such as the stop smoking service to informal venues such as pubs and using the Community Champions‟ own networks of friends and family. A full copy of the questionnaire used in the research can be found at appendix 6. Detailed information on the sample in the questionnaire including age, gender, ethnicity etc. is included at appendix 7. 1.3 Background data The areas of Gorse Hill, Rainbow Hill and Warndon have been chosen as the focus for the Strengthening Healthy Communities project. Together the area has been identified as one of six Areas of Highest Need (AoHN) in Worcestershire, designated as such due to the high levels of deprivation and poor health outcomes amongst local residents. The three wards are located to the north east of Worcester city centre and contain a total population of 16,853 (ONS mid year population estimates, 2011) which is roughly 17% of the Worcester population. The wards are each divided into four Lower Super Output Areas (LSOAs). Table 1: Population of the wards AREA Gorse Hill (South West Gorse Hill, Elbury Park, Old Warndon (Grasmere Drive / Borrowdale Drive area), Warndon, Windermere Drive) Rainbow Hill (Tolladine, Rainbow Hill, King George‟s Field area, Brickfields area, Cedar Avenue) Warndon (Brickfields, Cranham Primary School area, Old Warndon, East of Cranham Drive, Blackpole) 6 POPULATION 5,291 5,800 5,762 Worcester Strengthening Healthy Communities – Final Research Report Figure 1: Map of study area highlighted The wards are relatively deprived overall, but there is also significant variation within the wards, with each having areas that are more affluent and other parts which are amongst the most deprived areas in England. A full breakdown of the desk research by ward can be found in appendix 3. This information is based on existing and recent data which sets the context for why the project is being undertaken in these areas. 7 Worcester Strengthening Healthy Communities – Final Research Report Summary – Areas of focus (Areas of Highest Need): The data shows that all three wards faces significant challenges in terms of health outcomes, income and crime rates. Deprivation The area of Old Warndon, East of Cranham Drive (Warndon Ward) is ranked as the most deprived area in Worcestershire and 97.1% of the residents there are described as being „hard pressed‟. South West Gorse Hill (Gorse Hill Ward) which covers part of Tolladine is within the 10% most deprived areas in England. Tolladine (Rainbow Hill ward) is within the 10% most deprived nationally with 89.1% of residents described as „hard pressed‟ (ACORN, 2012). Employment and education Many residents in all three wards live on low incomes and a significant proportion are in receipt of out of work benefits including Jobseekers Allowance, Employment Support Allowance and disability benefits. In Gorse Hill ward, over a tenth of the working age population are unemployed and a fifth of young people are unemployed. There are a considerable number of young people classified as NEET (Not in Employment, Education or Training). (ONS Census, 2011) Educational attainment is also low with half of the population aged 16-74 having no qualifications. Crime and anti social behaviour Crime is a key issue, particularly incidents of anti social behaviour. Crime within the areas of focus is double than the average rate for Worcester. Anti social behaviour is a particular issue within Warndon ward. (West Mercia Police, 2012) Health indicators 20.9% of people in Warndon, 21.4% of people in Gorse Hill and 18.5% of people in Rainbow Hill have a limiting long term illness compared to 16.2% in Worcester and 17.6% in England (ONS census, 2011). The self reported health of residents shows that 23.4% report as “not good” in Warndon, 25% in Gorse Hill and 20.6% in Rainbow Hill (ONS census, 2011). 20.7% of the population in Warndon, 9.1% in Gorse Hill and 24.6% in Rainbow Hill are classified as „Healthy‟ (Health ACORN, CACI, 2012) Over half of the population are categorised as being „Future problems‟, (57.8%) in Warndon, 34.7% in Gorse Hill and 35.8% in Rainbow Hill compared to just 10.0% in Worcestershire. The percentage with „Existing problems‟ is 11.8% for Warndon, 38.6% for Gorse Hill and 25.4% in Rainbow Hill. Therefore, the areas contain a high proportion of people with existing problems and future problems compared to the general population. Data shows that there is a very high mortality rate for respiratory conditions in the area. Hospital admissions for COPD, stroke and diabetes are high. Connected to this, Warndon has the highest smoking related mortality rate in Worcestershire. Alcohol related hospital admissions are the highest in Worcestershire from Warndon and the highest amongst men from Gorse Hill. 8 Worcester Strengthening Healthy Communities – Final Research Report 2 Community Champions 2.1 Building community capacity Turning Point have facilitated a programme of community engagement in order to help shape a number of new community-led initiatives in response to the issues identified through the research. This process, as well as ensuring the new initiatives are responsive to local need, also builds capacity within the community so that local people will play a key role in the design and delivery of the proto-type initiatives. Our aim is to ensure the test initiatives are genuinely community led, building on the skills and knowledge of the local community to address fear and resistance to change and build buy-in and ownership from the outset. 2.2 Recruitment and training Twenty local people from the areas of focus were recruited and seventeen people completed the training to become Community Champions. Their role was to administer the questionnaire with 300 local people aged from 18 upwards and to engage with the local community to promote the project. The Community Champions were specifically recruited because they lived in the areas, knew the areas well and/or had good local contacts. A further key element of their role was to identify and make links with local organisations or services within the wards or that were used by people living in the wards. This would start the process of developing a database of existing local provision within the area. The mandatory training consisted of six modules: Module 1: Introduction to the project – to develop an understanding of why the project was being conducted. Module 2: Understanding the local health profile, existing services and organisations Module 3: Co-production and long term conditions management Module 4: Community action research Module 5: Research methods (including ethics) Module 6: Communication skills The training modules foster team working among the Community Champions, developing confidence over time and creating an understanding of how to conduct research. This training, together with some additional follow up sessions will result in an accredited qualification for Community Champions. Feedback from the Community Champions on the training: “I found it all fantastic. Very informative and interesting. All trainers were interesting, helpful friendly and had lovely humour. Thank you!” Becky 9 Worcester Strengthening Healthy Communities – Final Research Report “The training was very useful as the different modules taught us the qualities and skills in becoming part of a research team and how to deliver these skills and make use of them within the community.” - Sanne Figure 2 – Community Champions at a training session. 2.3 Focus on Community Champions The Community Champions came from a range of backgrounds and different levels of experience. The only prerequisite for participation was that they understood the local area and had an interest in the research and the local community. Their ages ranged from 17 to retirement age. By using a wide age spread and people in the community, the research was able to engage a wide range of people, including hard-to-reach groups who might not necessarily engage in conventional research by using the personal networks of some of our Community Champions. Some of the Community Champions explain why they got involved: “I felt that I could offer a lot to the job as I have lived in the area all my life and worked in full time employment as a sheltered housing manager for over 25 years before my retirement.” Mal “I wanted to make a difference to the community and I wanted to gain more experience.” Sassa. 10 Worcester Strengthening Healthy Communities – Final Research Report “I got involved because I wanted to make a difference in the local community and to meet new people.” Hannah “I wanted to help make a difference within the community where I live and within people’s lives and to gain an understanding of the needs of people’s lives or lifestyles within the local community I wanted to achieve a much more positive way of living within the community by everyone working together.”Sanne “As I grew up and lived in the area all my life, I wanted to be part of this and get involved, find out what other people in the community need. I want to make a difference to our community. What better way than asking local people what is really needed, rather than officials deciding what they think is needed.” – Becky “I got involved as I had been out of a job for almost 2 years. I wanted to get out of the house and into a routine of work. I was interested as it involved communicating with members from the community itself. There is also a positive end to the work that we have participated in as local initiatives are being set up.” Parminder Figure 3: The Community Champions 11 Worcester Strengthening Healthy Communities – Final Research Report 2.3.1 Outcomes for Community Champions Evaluation of the project will be included in the final report, which will also specifically look at outcomes for Community Champions. However, it is worth noting at this stage the value Community Champions have personally found from the project so far. “I have gained more confidence and better communication skills. I have also gained new friends”. – Hannah “I have gained more confidence in talking to people and feel happier in myself”.-Zoe “Being more involved in the community – I feel more confident in myself”. – Sassa “I have gained strong team building skills, listening and communication skills. I have also learned that I am a far more confident person than I thought I was. I am now able to engage with people on all levels. I have also gained much more understanding into the needs of people’s lives by becoming a community champion.”- Sanne “I have gained a lot more confidence and more knowledge of my community. I have also learned not to be so judgmental of people. If I can make a difference to people’s lives then I will feel that I have succeeded”. – Becky “I have gained research skills and met some very interesting people and widened by communication skills”. - Parminder This demonstrates the effect the project has had on local people‟s confidence in particular and how the Community Champions are invested in the project and want to see it as a success. 12 Worcester Strengthening Healthy Communities – Final Research Report 3 Questionnaire development and research framework 3.1 Questionnaire development The research framework and questionnaire were developed by a sub-group of the steering group comprised of: Rosie Wallbank – Project Manager, Turning Point Jamie Keddie – Research Manager, Turning Point Dr Frances Howie – Assistant Director of Public Health, Worcestershire County Council Rosemary Williams – Director of Practice Engagement & Service Development, SWCCG Katie Carver – Health & Families Coordinator, Worcester Community Trust Helen Perry – Social Marketing Manager, SWCCG The questionnaire format was a mix of open and closed questions with an emphasis on trying to get a clear picture about people‟s lives and the reasons behind why they manage their health and lifestyles in a particular way. Sections of the questionnaire: Section A – Existing health services in the area Section B – Health behaviours and lifestyle Section C – Long term conditions Section D – Managing your own health Section E – Getting involved/community engagement Section F – Personal information Section G – Prize draw and chance to get involved. 3.2 Research framework The following aims were set to ensure a good spread of the population, a high level of quality outputs and to increase participation in the research. Geographical representation – to aim for a roughly even split across the three wards. Long-term conditions representation – to ensure that management of long term conditions was understood through including a specific sub-section but allowing undiagnosed conditions or “future problems” to be captured by focussing the questionnaire on the whole population. Sampling technique – a mixture of snowball sampling and purposive sampling was used. The recruited Community Champions allowed for a natural breadth of research participants as part of the snowball sampling strategy. Through employing people from within the local community to undertake the research, their own networks and contacts were used which is intended to have a snowball effect to reach as many different people in the community as possible. 13 Worcester Strengthening Healthy Communities – Final Research Report Purposive sampling was used by identifying existing community services where interviews would be conducted, together with identifying more informal ways of reaching people – e.g. through pubs etc. to ensure that the participants were from as broad sources as possible and not just confined to people already engaged in the community or already attending services. Quality checks - weekly meetings between the Community Champions and the Turning Point research advisor were used to check that the questionnaires were being completed to a high quality and to discuss any issues or areas of inconsistency. These meetings also allowed a weekly dialogue about where the Community Champions were undertaking their research. This avoided overlap and maximised resources. Quality checks on a sample of questionnaires were also undertaken by the research advisor directly with participants. Chances to get involved and incentivised participation - All participants had the opportunity to be entered in to a prize draw to win high street shopping vouchers. This has been used in previous projects as a way to encourage and reward participation. Participants were also encouraged to volunteer to be involved further in the project by volunteering to participate in case-study research or focus groups and by volunteering to be kept informed about the project going forward. This is designed to encourage and develop community capacity and to ensure that the community are included in the planning of the new initiatives if they wish to be. 14 Worcester Strengthening Healthy Communities – Final Research Report 4 Community Research findings Summary of research findings Self reported health and lifestyle: The self-reported physical and mental health ratings are lower than the national average. However, most people think they are managing their health successfully on their own. People appear to have low expectations of what “good health” is. Smoking levels are high (38.9%), and many people have either been personally affected or have had a family member who has been directly affected by the misuse of drugs and alcohol (32.5%). Health and wellbeing: Wider lifestyle factors seem to be important regarding health including the influence of family members, stress, anxiety, money worries, unemployment and the prevalence of bereavement of family members, often through misuse of drugs and alcohol. Increasing motivation appears to be key to people making positive lifestyle changes. Feeling supported and reducing social isolation appears to be linked with wider health and wellbeing. Long term conditions: There is a higher rate of long term conditions than the official statistics suggest – the most common being depression/anxiety. Most people feel they are able to manage their condition independently but they haven‟t modified their behaviour since diagnosis. There appears to be a reliance on medication rather than lifestyle change to manage long term conditions. Coupled with this, the use of services outside of the GP surgery is low. Informal support networks and reliance on others appear key to people‟s perception of how they are managing their conditions. Health services: People are relatively satisfied with the placement of health services and the service they get from their GP, however, there are concerns over the availability of appointments and being able to speak to the appropriate person when required. There is low usage of health services other than the GP surgery, pharmacy and A&E, in particular low levels of use for NHS Direct, the GP out of hours service and the walk-in centre. 15 Worcester Strengthening Healthy Communities – Final Research Report Use of A&E: A&E is seen as more accessible than other services and is used when there is dissatisfaction with the GP service or when someone has reached crisis point. There is a link between mental health, drugs and alcohol and trips to A&E. The level of advice people think they have been given when attending A&E is low and most people do not think their visit to A&E was preventable. The community: Most people are ambivalent or apathetic about belonging to a community and the level of volunteering is low. However, there is a significant minority that do want to be further involved in the community and the level of informal volunteering, such as helping neighbours and friends, is high. There are clear benefits for people who have used community groups particularly regarding socialisation, confidence and mental health. Communication needs to be targeted through informal networks to appeal at a neighbourhood level. Barriers to getting more involved in the community include money, time, stress and feeling isolated. Detailed findings from the research are illustrated below. These findings are based on 314 questionnaires that were conducted with participants over 18 who lived in Warndon, Gorse Hill or Rainbow Hill. Further information on the demography of the sample can be found in appendix 7. The findings will feed directly in to the development of local initiatives to ensure they are directly responsive to the community‟s needs. After each section, some key questions to the steering group for initiative development are asked. These questions are directly generated from the research findings and are intended to focus the steering group‟s thinking on key areas to help the design and development of the initiatives. 16 Worcester Strengthening Healthy Communities – Final Research Report 4.1 Self reported health and lifestyle Summary of self reported health and lifestyle People‟s self reported physical and mental health is lower than the national average. However, most people believe they are managing their health successfully on their own. Physical health and mental health ratings do not decrease with age and the younger population report poorer health. There appear to be issues around expectations of health management and what people accept as “good health”. The rate of substance misuse is high with a third of respondents reporting that they or a family member have been directly affected by the misuse of drugs and/or alcohol. There is a higher rate of smoking than nationally and generally people are still trying to give up on their own – 58% of current smokers in the sample have tried to give up. Successful motivators appear to be the influence of friends and family and deteriorating health with barriers being mental health, and the worries and stresses of life. Diet appears more of an issue than physical activity and there is no one clear area where people want to improve their health and wellbeing, suggesting that health promotion initiatives should be focussed on improving health and wellbeing generally rather than targeting specific issues. 4.1.1 Physical health 44.9% of the sample record their physical health as “not good” (fair or below). This is much higher than the ward statistics in the 2011 census where 25% describe their physical health as below “good”. The findings also indicate that Rainbow Hill is the healthier ward. Interestingly, the physical health self ratings do not correlate with age – the poorest self-reported health is for the 45-54 age range with less than 50% reporting good health. Similarly, the self reported physical health of 18-24 year olds is lower than for 55-64 year olds and the amount of people recording their health as poor or very poor is higher for the 18-24s than for the people over 65. This suggests that physical health may be related to perception of what good health is but also demonstrates that it is not necessarily age related. Perhaps, unsurprisingly, the physical health ratings are significantly lower for people diagnosed with a long term condition compared to respondents who haven‟t been diagnosed. Table 2 Q. How would you describe your physical health? Ratings Percentage Very good 22.6% Good 31.8% Fair 30.3% Poor 12.4% Very poor 2.2% Base: 314 17 Worcester Strengthening Healthy Communities – Final Research Report Table 3 Physical health self-ratings by age Age Very good/good 18-24 57% 25-34 71.8% 35-44 56.3% 45-54 44% 55-64 54% 65+ 36% Fair Poor/very poor 27.7% 16.7% 37.4% 32.7% 33.3% 47.3% 17.9% 11.5% 10.9% 23.1% 12.5% 16.4% Base: 314 When respondents who rated their physical health as „very good‟ or „good‟ were asked to explain their ratings, most referred to activity levels, diet or just “having to get on with it”. Whilst the main issues for respondents who rated their physical health as „fair‟ to „very poor‟ relate to physical health, the quotes demonstrate that there are other lifestyle issues that contribute to these ratings, such as work, money, depression and stress. Table 4 Q. What are your reasons for this answer? Ratings of „very good‟ to „good‟. Reason Percentage Active/do a lot of exercise 49.7% Have a good diet/eat well 20.6% I have to be ok/just get on with it 8.2% Percentages relate to respondents who answered „very good‟ or good‟ Multi response question – Base: 171 “I’m generally fit and healthy. I eat healthily regularly and exercise at least five times a week.” Female, 55-64, Warndon “I have good days & bad days. I have to cope with things as I am a one parent family.” Female, 45-54, Rainbow Hill Table 5 Q. What are your reasons for this answer? Ratings of „fair‟ to „very poor‟ Reason Percentage Problems related to long term conditions Mobility issues 50.4% Could do more exercise 17.7% Smoking/alcohol related issues Could eat better 11.3% Being overweight 9.9% 17.7% 9.9% Percentages relate to respondents who answered „fair‟ to „very poor‟ Multi response question – base 141 18 Worcester Strengthening Healthy Communities – Final Research Report “COPD is the big problem.” Male, 65+, Gorse Hill “I could be fitter. I try and eat healthily, but it seems expensive and I haven’t always got the money.” Male, 25-34, Gorse Hill “I don’t exercise because I struggle to breath. I am very overweight which causes me stress & I get very upset.” Female, 25-34, Gorse Hill “I’m overweight. That makes me feel depressed. I’m asthmatic, I have bad knees and my weight adds to my problems.” Female, 45-54, Warndon “Age is creeping up on me. I smoke. I’ve always got a cough but that’s my own fault. I work odd hours so I get sleep deprived & I just don’t feel as energetic as I did or want to feel.” Male, 45-54, Rainbow Hill 4.1.2 Management of physical health The findings at table 6 demonstrate that over a quarter of respondents are currently receiving support from health services in relation to their physical health. However, only 2.5% are attending a support or community group for help with their physical health. This suggests a dependency on traditional health services rather than successful engagement and support derived from within the community. Furthermore, almost 60% report that they are managing their health successfully on their own; even though this is more than report they have good physical health. This suggests there is a gap between what people consider to be successful management of health and what constitutes good physical health. One of the Community Champion‟s observations on conducting the research may be relevant in this area: “People seem to accept what they have, be it good or bad.” Table 6 Q. How are you managing your physical health? Answer Percentage Managing health 59% successfully on my own Receiving support from 26.5% health services Attend a support or 2.5% community group Multi-response question, base: 314 19 Worcester Strengthening Healthy Communities – Final Research Report 4.1.3 Mental health Just under a third of participants describe their mental health as “not good”. This is lower than that for physical health, suggesting that mental health levels are better. However, 21% of the sample state they have been diagnosed with anxiety and/or depression, which is the most prevalent long term condition in the sample accounting for 40% of all people with a long term condition diagnosis. Again, these self-reported ratings of mental health could be related to people‟s expectations for what constitutes “good” mental health. Furthermore, the data shows that mental health is a bigger concern for younger parts of the population. The poor/very poor levels are highest for 18-34 and 45-54 year olds with older 65s reporting the best mental health. Table 7 Q. How would you describe your mental health? Rating Percentage Very good 31.5% Good 32.8% Fair 21% Poor 11.1% Very poor 2.9% Base: 314 Table 8 Mental health self-ratings by age: Age Very good/good 18-24 59.6% 25-34 61.5% 35-44 71.0% 45-54 44.2% 55-64 71.0% 65+ 83.6% Fair Poor/very poor 21.3% 20.5% 16.4% 36.5% 12.5% 16.4% 19.2% 18.0% 12.7% 19.2% 16.7% 0% Base: 314 When participants were asked to describe their ratings, the following reasons were most frequently occurring. The quotes again highlight how wider issues in particular, money and employment concerns and family and relationships, affect mental health. 20 Worcester Strengthening Healthy Communities – Final Research Report Table 9 Q. What are your reasons for this answer? Very good/good ratings Rating Percentage I don‟t worry 29.7% Have coping strategies 21.3% I have problems but I have 14.9% them under control I have little or no stress 6.4% Rely on friends/family 5% Has a good social life 5% Percentages relate to respondents who answered very good or good Multi response question – base 202 “After having CBT and the support of my GP & family I now feel I can deal with most situations.” Male, 18-24, Warndon “I have hardly any worries if I do have I talk to family and friends and sort things out and not dwell on them.” Male, 65+, Gorse Hill. Table 10 Q. What are your reasons for this answer? Fair to very poor ratings Ratings Percentage Suffer from depression 31.9% Suffers from stress 23.4% Suffers with anxiety 13.5% Other mental health issues 12.8% affect them Loss of family/bereavement 9.2% Percentages relate to respondents who answered fair to very poor Multi response question – base 141 “I do suffer mild depression and anxiety, but only when something bad happens in my life. I have been fine for years, but my mother died just before Christmas, so it is bad at the moment.” Female, 55-64, Rainbow Hill “I don't think my mental health is very good. I am on antidepressants; I am low in mood & can't be bothered.” Female 25-34, Gorse Hill. “I have bouts of depression. I was an alcoholic. I don't drink much anymore. I used to take drugs & I am on medication from my GP. All my problems arose from the death of my wife who was 32. My life went downhill from then.” Male, 35-44, homeless. “My relationship broke down & I went into deep depression took drugs & drank.” Male, 2534, homeless. 21 Worcester Strengthening Healthy Communities – Final Research Report “I'm a worrier. I get stressed a lot and get depressed a lot due to everyday life and not getting any help with my weight problem. It gets me down.” Female, 18-24, Warndon. “I get depressed not having a job, which then has a knock on effect, with no money. I always seem to be in a bad mood. I never used to be like this when I was working. I have no enthusiasm.” Male, 25-34, Gorse Hill “I do feel down a lot. I lost both my parents in the last 2 years so I often get a bit depressed about it. I have also been in & out of work for the last 3 years so I worry a lot i.e. paying the bills & losing the house.” Male, 45-54, Rainbow Hill “Mental health [problems are] hereditary & my mother suffered depression & had a mental break down. I started getting mental health problems when my mother died 25 years ago. Then I went into an abusive marriage & after having children I had post natal depression. After I lost 3 babies I had a breakdown I lost my dad 8 months ago. So I am very depressed at the moment. I'm waiting for counselling.” Female, 45-54, Gorse Hill. “I do have a lot of stress in my life but don't we all. Until you asked me this question I didn't realise stress was a mental health problem.” Female, 45-54, Rainbow Hill. 4.1.4 Management of mental health Just over a fifth of the participants are receiving support to manage their mental health which is less than the number of people stating they have had a diagnosis of depression/anxiety in the long term conditions section of the questionnaire (21%) and is well below the number of people describing their mental health as “not good” (35%). This suggests that there are a significant number of people struggling to maintain positive mental health but not accessing help for this and believing that they are managing successfully on their own. Again, this suggests there is a difference between the definition of successful management and having good mental health. Below are the figures for how people self report they are managing their mental health. Table 11 Q. How are you managing your mental health? Answer Percentage Managing health 61.1% successfully on my own Receiving support from 20.4% health services Attend a support or 3.2% community group Multi response question – base 314 22 Worcester Strengthening Healthy Communities – Final Research Report 4.1.5 Management of general health Overwhelmingly, people reported that they think they can have at least some control on their health with over three quarters believing that they can have a lot of control. This appeared to correlate with the presence of support networks and employment; half of the participants who responded “none at all” to the question about “how much control do you think people can have on their own health” had family members involved in drugs/substance misuse and a third had experienced problems with health services. Furthermore, 83% of the participants who responded “none at all” do not work. This suggests that a person‟s belief about the control they have over their own health might be linked more to wider issues outside of health condition specific management. Table 12 Q. How much control do you think people can have on their own health? Rating Percentage A lot 77.4% A little 16.2% None at all 1.9% Don‟t know 3.5% Base: 314 The following quotes are from two of the respondents who answered “none at all”. “My dad has always gone to the pub after work and doesn’t come home until he’s drunk. My brother is a heroin addict. He no longer lives at home because he has robbed off all of us”. Male, 25-34, Gorse Hill “[The one thing that would help to improve by health and wellbeing is] for the doctors to listen to me and help me.” Female, 45-54, Warndon 4.1.6 Impact of substance misuse Just under a third of respondents report that they or a family member have been affected by alcohol and drugs misuse. Furthermore, significantly more of the participants affected by drugs or alcohol misuse have been diagnosed with a long-term condition suggesting a link with this lifestyle and poor health. Table 13 Q. Have you or anyone in your family been directly affected by the misuse of drugs or alcohol? Answer Percentage Yes 32.5% No 66.9% Not answered 0.6% Base: 314 23 Worcester Strengthening Healthy Communities – Final Research Report Table 14 Breakdown of “yes” answers from Table 13 Answer Percentage Alcohol misuse 38.2% Drugs and alcohol misuse 32.4% Drugs misuse 29.4% Base: 314 The following quotes illustrate the complexity of people‟s lives and how interrelated issues are, in particular how bereavement, worry about family and friends and worry about money and unemployment can have an effect on people‟s behaviours and mental health. “I lost a parent to alcohol abuse. It was a problem all his life and although tried to stop many times never succeeded. He never had any support and had never been to rehab.” Female, 45-54, Warndon. “My mother turned to alcohol when she got into a lot of debt & she died young.” Female, 2534, Rainbow Hill “Mum drinks a lot of alcohol daily; I feel it’s a problem for her. But she does not see it as a problem. Brother smokes cannabis I see he has a problem but he can’t see it.” Female, 2534, Rainbow Hill. “My dad was an alcoholic & died. Three friends died from alcohol and my mum used to be addicted to speed. I also take lots of drugs and drink lots of alcohol.” Male, 18-24, Gorse Hill. “I drink to block out things, but then I’m nasty to my family.” Female, 45-54, Gorse Hill. 4.1.7 Smoking habits The percentage of smokers within the sample is significantly more than nationally – 19% of the population in England smoke (ASH, 2013). 60% of this sample have smoked at some time during their lives and 39.2% currently smoke. Smoking is more prevalent in the younger population with over half of people aged 18-34 smoking. Unsurprisingly, people diagnosed with long term conditions are more likely to be smokers or exsmokers than those who have never smoked. For instance, of the 44 people who have been diagnosed with asthma, only 12 people have never smoked and half of the 44 still continue to smoke with asthma. Thirteen have tried to give up unsuccessfully. Table 15 Q. Do you smoke? Answer No, I have never smoked Yes I currently smoke No, but I used to smoke Percentage 39.2% 38.9% 21.3% Base: 314 24 Worcester Strengthening Healthy Communities – Final Research Report Table 16 Answer to Q. „Do you smoke?‟ by age Age Yes I currently smoke 18-24 53.2% 25-34 51.3% 35-44 33.9% 45-54 48% 55-64 37.5% 65+ 7.8% No but I used to smoke 12.8% 18.0% 21.4% 19.2% 20.8% 36.4% No I have never smoked 34% 30.8% 44.6% 32.7% 41.7% 56.4% Base: 314 Table 17 Q. If you still smoke, have you tried to give up before? Answer Percentage Yes 58% No 42% Base: 314 Of the people that currently smoke but have tried to give up, it is roughly even as to whether they had help or they tried to give up on their own. The following quotes pull out some of the approaches taken: “The chemist gave me patches and put me on a course. When I went the second time to the chemist I was asked if I’d had a cigarette since the last time I’d been. I told the truth that I had had a couple when I felt a bit stressed, so the chemist told me I could not stay on the course. So without the help I started smoking again.” Male, 18-24, homeless. “I tried patches prescribed by GP but they were a nightmare. [I had] tablets prescribed by GP – with the tablets I got to 2 cigarettes a day. Because I was down to 2 a day my GP wouldn’t prescribe any more tablets because I hadn’t given up altogether. [Because of this] I gradually started to smoke more. [I still smoke] today”. Female, 45-54, Rainbow Hill. The most common reasons for people starting to smoke again was related to stress and lack of willpower/motivation, the following quotes illustrate this finding: “I tried giving up on my own and managed very well for a few years. Following a stressful time after losing a friend and my Dad I started smoking again.” Female, 45-54, Warndon. “I went cold turkey but it did not work. I have not got any will-power. I pack up for a few months but always go back to smoking as soon as I get stressed.”Female, 45-54, Gorse Hill. “I gave up but came back to smoking due to stress regarding my conditions”. Female, 25-34, Warndon. This reflects that wider stress has an effect on smoking and that, anecdotally, support from health services have taken a strict approach without focussing on the role of stress. 25 Worcester Strengthening Healthy Communities – Final Research Report The most common way that people gave up smoking was on their own without any support. Having the pressure of family members asking them to, witnessing family members‟ health deteriorate due to smoking or being pregnant were also big motivators for quitting. Few people had accessed support for giving up and this mainly seemed to be after their health had deteriorated and giving up becoming “necessary” due to health. “I gave up after I was ill (stress Pneumonia) & my son begged my before he died to give up smoking so I have respected his wish.” Female, 65+, Rainbow Hill “As I started to feel stronger from suffering with depression I took a look back and realised how unfit and unhealthy I had become. So I decided to give up smoking, start exercising a couple of times a week and eating healthier. I used patches bought from the chemist as the appointment was too long away.” Male, 25-34, Warndon. “I was really bad and kept having chest infections, and was diagnosed with COPD, and doctors said my life would be very short if I didn’t pack up, so I just stopped.” Male, 65+, Rainbow Hill. 4.1.8 Eating habits There is a belief amongst almost 70% of the participants that their average daily diet is at least quite healthy even though only 15% eat the recommended daily amount of fruit and vegetables and over half the sample have less than three portions of fruit or vegetables a day. Only 21.5% of the people who state their diet is „quite healthy‟ or „very healthy‟ state they eat the recommended daily amount of five or more portions of fruit and vegetables. This suggests that there is a gap between people‟s understanding of a healthy diet and what their diet actually is. However, significantly, over 25% acknowledge that their diet is not healthy. People with long term conditions are also more likely to rate their diet as less healthy than people who haven‟t been diagnosed with a long term condition. Table 18 Q. How healthy do you think your average daily diet is? Answer Percentage Very healthy 16.9% Quite healthy 52.5% Not very healthy 25.8% Very unhealthy 3.8% Base: 314 26 Worcester Strengthening Healthy Communities – Final Research Report Table 19 Q. How many portions of fruit or vegetables do you eat on an average day? Answer Percentage None 10.5% One to two 42.4% Three to four 30.9% Five or more 15.3% Base: 314 Table 20 Percentage of people who state they are “quite or very healthy” who eat more three or more portions of fruit a day. Answers Percentage Answered “very healthy or 21.5% quite healthy” and eat five or more portions of fruit and vegetables a day Percentage relates to respondents who answered “quite healthy” or “very healthy” Base: 218 4.1.9 Exercise Over a quarter of respondents report that they exercise every day. However, 17.5% do little to no exercise. Unlike the data about eating habits, there is no significant difference to people‟s reported exercise levels between those diagnosed with a long term condition and those who have not been diagnosed. Table 21 Q. How many days a week on average do you spend a total of 30 minutes on physical activity at a moderate pace or above? Answer Percentage None 12.1% One 5.4% Two 9.2% Three 14.6% Four 12.1% Five 12.4% Six 5.7% Seven 27.4% Base: 314 Participants were told “moderate exercise means you‟re working hard enough to raise your heart rate and start to sweat. This can include activities such as walking to work, doing strenuous housework, or attending fitness classes or playing sport”. Furthermore, there appears to be some link between mental health ratings and physical exercise – over 50% of the people who rate their mental health as poor or very poor report they exercise three times a week or less, whereas over 50% of the people who rate their mental health as fair or above exercise more than three times a week. 27 Worcester Strengthening Healthy Communities – Final Research Report The following case study highlights someone who is dealing with many conflicting factors on their health and wellbeing. Please note, all case studies have been anonymised. Kyle: 25-34, male, White British, works full time Kyle is a regular visitor to the GP and really likes the fact that he has always had the same GP as it helps with understanding his situation. However, he finds that he has to wait too long for appointments over the phone. Kyle thinks that his physical health is good and he frequently attends the gym, however he feels his mental health is fair as he has been through a bad patch in the last few years. Kyle feels that he has dealt with this successfully himself. Kyle currently smokes and has never tried to give up. His father died from alcohol poisoning. Kyle thinks people have a lot of control over their health and he would like help with improving his diet. However, he has not approached any services for advice with this and he thinks that “no one can help currently”. He has previously been to hospital as an emergency due to being involved in a brawl when drunk. He woke up in hospital after the incident after having stitches. He was given advice about responsible drinking but he didn‟t find it helpful as he wasn‟t ready to take notice. He does not think that this incident could have been prevented as it was just “one of those situations”. He strongly feels part of the community but he does not currently volunteer. He does help friends and family with DIY. The only thing that would make him want to be more involved in the area is by “moving all of the residents out of the area”. He does not attend any voluntary groups or community groups as he doesn‟t want to. He finds out about what is going on locally through friends and family. The main issues that he feels affect his general health and wellbeing are a lack of public transport, housing problems and unemployment/lack of job opportunities. 4.1.10 Key questions to the steering group for initiatives How can people‟s expectations for their physical and mental health be raised so that they want their health to be better and want to make positive changes? How can the motivators of friends and family be used to improve lifestyle behaviours? How can the social behaviours of smoking and substance misuse within the community be challenged by positive role models and focussed advertising? What existing resources can be used to tackle stress? How can existing provision incorporate a focus on mental health outcomes? 28 Worcester Strengthening Healthy Communities – Final Research Report 4.2 Health and wellbeing Summary – health and wellbeing Wider lifestyle factors seem to be important regarding health including the influence of family members, stress, anxiety, money worries, unemployment and the prevalence of bereavement of family members, often through misuse of drugs and alcohol. Increasing motivation appears to be key to people making positive lifestyle changes. Feeling supported and reducing social isolation appears to be linked with wider health and wellbeing. The level of debt and worry about money in the community is high and affects health and wellbeing. There is not one clear concern for people regarding their health and wellbeing. Also, significantly, 21.4% of people do not want to improve their health and wellbeing. Therefore, there needs to be an appreciation of a lack of willingness for some people regarding making changes. Furthermore, this does not set out a clear way to structure initiatives but rather suggests that there are many things people may like to improve and that these might not necessarily be specifically health based but wider lifestyle changes such as tackling debt, or reducing social isolation. Table 22 Q. Thinking back on what you have said so far, what is the one thing you would like to do to improve your health and wellbeing? Answer Percentage Improve my diet 24.3% Nothing 21.4% Do more exercise 18.8% Stop smoking 17.5% Other** 11.8% Cut down on alcohol 6.1% Base: 314 **Other includes: Sort out undiagnosed health issues: 1.6% Lose weight: 1% Stop taking drugs: 1% Reduce anxiety: 1% Socialise more: 0.6% Nobody had approached the Expert Patient Programme, community matron or the healthy lifestyles hub and most respondents hadn‟t approached any services for help. When they had asked for help, it was through the traditional routes and again, relying on friends and family. 29 Worcester Strengthening Healthy Communities – Final Research Report Table 23 Have you approached any of the following services for help with this? Answer Percentage No help or support asked for 12.1% GP 6.1% Nurse 6.1% Pharmacist 6.1% Friends and family 6.1% Health Trainer 1.9% Stop smoking service 1.6% Family support group 1.3% Health visitor 1.3% District nurse 0.6% Domestic abuse support 0.3% service Multi-response question – base 314 When asked what would help to improve their health and wellbeing, the following answers were the most frequent. Whilst some of these are physical health specific, a lot of them relate to money worries, worries generally and broader mental health/wellbeing goals. The most frequent two answers show that increasing motivation for respondents is key to making improvements, as is the role in support and guidance from services. Table 24 Q. What would make it easier to improve your health and wellbeing? Answer Percentage Having more motivation 17.8% Receiving more support and guidance from services Cheaper healthy food 14.6% Having more time to cook 7.6% Cheaper gyms 7% More money 7% Reduce stress 5.4% Having more peer support/social structure 3.8% 9.9% Percentages relate to number of respondents who answered the question Multi response question – Base 297 30 Worcester Strengthening Healthy Communities – Final Research Report The following quotes illustrate the findings further. “I'm aware that there are groups for stopping smoking and that my GP would help me. I just don't feel like I've ever been ready to quit yet.” Female, 45-54, Warndon. “To have someone to help 24/7 as my will power is so low. I need to be pushed all the time.” Female, 25-34, Warndon. “If I could give up smoking but it's so hard. Other than that I feel ok. I have a stressful life so I never feel I have the strength to give up & I am concerned it will make my anxiety & stress levels worse.” Female, 45-54, Gorse Hill. “I need to lose weight. As a person with depression I find it hard to get a job & it makes my depression worse. If the medical profession could liaise with the employment agency to get people with mental health back into work & get confidence back that would help with lifestyle & give me self worth & help with depression. People need to work together.” Female, 45-54, Gorse Hill. “Maybe having access or be able to go somewhere to be directed further for my needs, having a support group for depressed people & knowing who to ask in the first place for help.” Male, 45-54, Warndon. “Not suffering with anxiety. Not having family members/ friends who smoke. Not being bored. Having a job.” Male, 18-24, Warndon. “I probably could give up with the use of patches etc., but fags help me getting too stressed. Maybe if I had a job I wouldn't be stressed and unhappy.” Male, 25-34, Gorse Hill. These quotes demonstrate that the barriers to improving health and wellbeing are linked to stress, money worries, employment worries and lack of support. The prevalence of mental health and wider lifestyle pressures was noted by one of the Community Champions: “Mental health came out as a massive issue and lack of support for this is – I found – a BIG BIG problem. I want the project to achieve help for mental health with more accessible help locally. I think a local walk-in counselling team is needed. Stress, anxiety and depression I found is so widespread in this community and affects other health issues i.e. smoking, drinking, drug abuse is harder to control when your mental health is affected. It is a circle that goes on and on. Also, more help for family and carers for people with mental health issues is needed. More help with bereavement is also needed”. 31 Worcester Strengthening Healthy Communities – Final Research Report The following case study highlights some of these issues regarding motivators and barriers to maintaining a health lifestyle. Please note, all case studies have been anonymised.: Rob: Male, 25-34, White British, Unemployed Rob is on medication for a diagnosed mental health condition and suffers from depression. He says that the medication he is on has bad side effects which affect his daily life. He wishes that he had a more personal relationship with his GP and that he was able to book appointments more flexibly. Rob presented at A&E with pains in his lungs and was found to have pulmonary embolisms. He was given advice to cut down on fatty foods and give up smoking. Whilst he found this advice helpful, he still continues to smoke and only eats two portions of fruit and vegetables a day. Rob tries to keep himself fit by going to the gym regularly. However, he feels that he needs more determination and will power to stick to exercise and diet goals. He thinks he would eat more healthily if healthy food was more affordable as he finds it cheaper to buy unhealthy options. Rob currently smokes but has tried to give up in the past and was successful for 20 days using patches and chewing gum. He found that the urge to have a cigarette became too great. He thinks that the support was there but his willingness to use the support was not enough. Rob doesn‟t volunteer in the community but does help out friends and neighbours. He would like to get involved by making and keeping the community tidier. He did not know of any local groups and did not know about the “what‟s on guide” but was keen to find out more about how to get involved. He currently only finds out about what is going on locally through friends and family. Housing problems, anti-social behaviour and money problems/debt were the main things that Rob found affected his health and wellbeing. 32 Worcester Strengthening Healthy Communities – Final Research Report Table 25 Q. Can you select the three issues that have the most impact on your health and wellbeing? Please rank them 1= most impact, 3 = least impact Issue Score Money problems/debt Anti social behaviour Unemployment/lack of job opportunities Drugs/alcohol problems Feeling isolated Housing problems Access to GPs Affordability of public transport Lack of support from family and friends 309 220 210 Number of people choosing it in top 3 issues 45.2% 30.6% 36% 178 125 123 95 80 24.9% 20.7% 19.7% 13.4% 16.6% 72 12.4% Base: 314. Score has been calculated with weighting for whether people ranked 1,2 or 3 for an issue as participants were asked to rank in order of impact. 4.2.1 Money and unemployment Overwhelmingly, the most important issue people think affects their health and wellbeing is money problems and debt, with 49% of the people who answered this question stating this was in their top three issues, and 20% of participants ranking this as the most important factor to their health and wellbeing. Linked to this, unemployment/lack of opportunities for jobs was a top 3 factor for 39% of participants, suggesting that the issues of money and employment are key concerns for respondents in these communities. As evidenced elsewhere, this is a broad emerging theme throughout the research that worries about money, debt and job security are having an effect on the physical and mental health of the participants; the theme has emerged regarding dependency on smoking, drugs and/or alcohol and as reasons for not getting more involved in the community or as barriers for respondents to changing their lifestyles. 4.2.2 Substance misuse and ASB The issues of ASB and drugs and alcohol misuse also feature significantly in issues affecting people‟s general health and wellbeing. This demonstrates the role the wider community environment has on health. Again, these themes have been drawn out in the research, for instance, in the high number of respondents affected by drug and alcohol misuse and people struggling to beat addiction to smoking. 33 Worcester Strengthening Healthy Communities – Final Research Report These themes were picked up by the Community Champions in their experience of conducting the research: “I think we need better services to help people to get a job and experience. Also, where teenagers can go and do something so they will be off the stress so crime and vandalism would stop.” Zoe “I want the project to achieve new health services that do services for different ranges of people and ages e.g. a service that tries to encourage younger people not to do drugs and also I think you should have younger people to engage with them. I think if you had someone to say about their experiences with drugs it would turn them against them.” Hannah 4.2.3 Social isolation “Feeling isolated” was a top three issue for 21% of the participants, with 12% of participants choosing lack of support from friends and family as a top three issue. This is also a recurring theme throughout the research findings – and where people feel lonely or isolated or lack support, this contributes to mental health concerns, management of health and a lack of feeling in control of their own health. This theme is also one picked up by several Community Champions: “I feel there is a strong sense of belonging to a community by some, but for others, they felt isolated” – Mal. “What surprised me was how isolated people felt”. Sassa The top three issues demonstrate that reducing health inequalities and increasing healthy lifestyles of people in these wards needs to be looked at through an appreciation of the context of people‟s lives, in particular, the stresses they are experiencing, their expectations and the amount of formal and informal support they have as individuals. 34 Worcester Strengthening Healthy Communities – Final Research Report The case study of Liam, who is homeless, brings out some of these themes. Please note that all case studies have been anonymised: Liam – male, 35-44, homeless, unable to work due to health reasons Liam is a frequent visitor to his doctor‟s surgery which is the walk in centre and feels that everything about this surgery is good. He also thinks that all health services are where he needs them when he needs them. Liam has been to A&E as an emergency on several occasions, including for detox and most recently was taken there by the police as he hurt his wrist due to being involved in a fight. Liam describes his physical health as fair and his mental health as poor. He is currently accessing support from services for his physical and mental health. Liam is an asthmatic and he currently smokes, has tried to give up in the past and would like to give up again as a priority. “I have bouts of depression. I was an alcoholic. I don't drink much anymore. I used to take drugs & I am on medication from GP. All my problems arose from the death of my wife. My life went downhill from then.” Liam would like to live in a place with people who share his illnesses so he could have his own space but feel supported. He feels he currently needs a lot of support but hopes to be independent when the treatments kick in. He is also eager to be involved in the community and feels that he could volunteer by helping other drug addicts as he understands what they are going through. Liam has no formal qualifications. The issues affecting him the most are drugs/alcohol, money problems/debt and affordability of public transport. 4.2.4 Key questions to the steering group for initiative development How can a holistic approach be taken to improving health and wellbeing including wider lifestyle issues of debt, anti-social behaviour and reducing isolation? How can the existing knowledge within the community, of living successfully with competing demands on health, be harnessed? How can motivation be encouraged together with making people feel more connected to their community? 35 Worcester Strengthening Healthy Communities – Final Research Report 4.3 Long term conditions sub-sample Summary of long term conditions There is a higher prevalence of long term conditions than the official statistics suggest. The most common long term condition is depression/anxiety. Most people feel they are able to manage their condition very well independently and understand their condition well but there is scope for further understanding. Most people haven‟t modified their behaviour since diagnosis and there appears to be a focus on medication rather than lifestyle change. Informal support networks and feeling supported by health services in managing their conditions is key to the perception of successful management. When diagnosed, most people have only accessed traditional methods of support and the use of services outside of the GP surgery is very low. 4.3.1 Long term condition diagnosis Just over half of the sample state they have been officially diagnosed with a long term condition (53.5%). The most prevalent long term condition is depression/anxiety with 21% of all respondents stating that they have been officially diagnosed with this. When participants who solely have a mental health long term condition are excluded from the sample, the number of people with a long term condition is 45.9% of the entire sample and only 16.9% have any of the six key long term conditions; either asthma, hypertension, diabetes, stroke, COPD or heart disease. Table 26 Q. Have you been officially diagnosed with a long term condition? Answer Percentage Yes 53.5% No 45.9% Base: 314 36 Worcester Strengthening Healthy Communities – Final Research Report Table 27 Percentage of people diagnosed with LTC Other Depression/anxiety Asthma Hypertension Diabetes Stroke Other mental health issue COPD Chronic Heart Disease Prefer not to say a long term condition split by condition Percentage 39.9% 39.3% 26.2% 19.6% 13.1% 7.1% 7.1% 4.7% 3% 1.8% Percentages relate to respondents who have been diagnosed with a long term condition. Multi-response question, base 168. Table 28 Further information on the “other” long term conditions (most commonly occurring, two or more respondents) Long term condition Percentage Arthritis 6.5% Underactive thyroid 4.2% Fibromyalgia 4.2% Irritable bowel syndrome 2.4% Epilepsy 2.4% Angina 2.4% Chron‟s 1.8% Cancer 1.2% Percentage relates to respondents who have been diagnosed with a long term condition. Multi-response question, base 168. 4.3.2 Management of long term conditions Two thirds of the sample think they are able to live independently and therefore, the assumption is that they need no extra support and believe they are managing their health successfully. The quotes below suggest that the presence of support from friends, family and services is key to respondents‟ feelings of whether they can manage their conditions. Where there appears to be a level of social isolation, people feel less able to manage. This theme was picked up by the Community Champions in their opinions from conducting the research: “I would like to see the people who felt isolated encouraged to participate in activities that are available in their community. People need help in areas that are not catered for or are difficult to access. These things need to be made more accessible for them”. Mal 37 Worcester Strengthening Healthy Communities – Final Research Report Table 29 Q. How much do you agree with the statement “generally I am able to live independently and access all the help I need to manage my condition” Answer Percentage Strongly agree 39.6% Agree 37.3% Neither 13.6% Disagree 6.5% Strongly disagree 3% Percentages relate to respondents who have been diagnosed with a long term condition Base: 168 The following quotes illustrate these findings: “I live on my own but socialise when I can & have good family around me. I need for nothing.” – Female, 65+, Rainbow Hill. “As I am able to manage on my own with my prescribed inhalers I take for my Asthma. I only go to the doctors when I need to. I’m independent”.- Male, 35-44, Warndon. “Because my doctor knows my history so is there if I need support” Female, 25-34, Rainbow Hill. “I can still do my normal everyday living activities. A family member collects my prescription which chemist automatically re-orders my tablets every month. My son does a little food shopping.” Female, 25-34, Gorse Hill, “Because I had a lot of family support & I know I can live independently.” Female, 45-54, Gorse Hill. The following are quotes from people who did not agree with the statement: “Any financial problem, it takes a long time to be sorted out as I am fairly new to the area (2yrs) I don't know what services are available to me. No one has told me where there is help for my condition.” Female, 65+, Gorse Hill “Because I struggle sometimes on my own with being overweight and find it hard being on my own.” Male, 55-64, Rainbow Hill. “Because you can't get to see the doctor when you need to, medical help or advice is not on hand when you need it.” Female, 45-54, Warndon. “I feel I need to have more support & feel doctors just want to pass you off & chuck pills at you.” Male, 25-34, Gorse Hill. “I get lonely on my own sometimes.” Female, 25-34, Gorse Hill. 38 Worcester Strengthening Healthy Communities – Final Research Report 4.3.3 Understanding of long term conditions People think they have a good understanding of their own long term condition, although, a third of the sample would like to find out more about their conditions. This should be viewed in the context that most people think they are able to manage their condition successfully and independently. Again, this may be linked to the understanding of what successful management is and to what extent people feel they need to understand their condition. This is compounded by the findings from behaviour or lifestyle changes at table 31. Just over half of respondents with a long term condition have taken action to change their behaviour since this diagnosis, but almost half of the sample who have been diagnosed have carried on without any lifestyle modifications, even though most of these people believe they completely understand their condition and are able to manage it successfully. Drawing on the qualitative data, this may be linked to a reliance on medication to manage their conditions, rather than changes in lifestyle: Table 30 Q. How well do you feel you understand your condition? Answer Percentage Understand completely 65.1% Understand a little 20.7% Would like to understand more 13% Don‟t understand 0.6% Don‟t know 0.6% Percentages relate to respondents who have been diagnosed with a long term condition Base: 168 Table 31 Q. Have you changed your behaviour or lifestyle since you were diagnosed? Answer Percentage Yes 51.2% No 48.% Percentages relate to respondents who have been diagnosed with a long term condition Base: 168 The following quotes draw out the potential association between management of respondents‟ long term conditions and medication: “Because I receive help that I need - I'm on tablets to control it all so it doesn't stop me from doing anything independently.” Female, 65+, Gorse Hill “I take tablets and inhalers to control my illness.”Female, 65+, Warndon. “I get on with it. Stick a smile on my face. The only time I need to see a GP is when I need more tablets.” Female, 35-44, Warndon. “Because the blood pressure is being managed sufficiently by medication”. Female, 65+, Rainbow Hill. 39 Worcester Strengthening Healthy Communities – Final Research Report “Because I am on medication that controls my condition.” Female, 35-44, Warndon. “I see the nurse once a fortnight to have BP checked & weighed. I have repeat prescriptions for my BP medication. Otherwise I don't see anyone else.” Female, 65+, Gorse Hill. When people have modified their behaviour, table 32 shows the common ways these changes have been made. However, as table 33 demonstrates, fewer than 10 people have accessed any other services for support with their conditions other than the GP, pharmacist, nurse or friends and family. Again, this highlights the importance of informal support networks of friends and family, and a need to increase the use of non-traditional services for assistance with their health management. Table 32 Lifestyle modifications made after diagnosis of long term condition Modifications made Percentage Changed diet 48% Exercised more 29% Lost weight 24.4% Stopped smoking 15.1% Cut down on drinking alcohol 14.0% Stopped drinking alcohol 12.8% Joined a support group 11.6% Cut down on smoking 8.1% Percentages relate to respondents diagnosed with a long term condition and have made lifestyle modifications Multi-response answer - base 86 Table 33 Q. What services have you accessed in relation to your condition? Service Percentage GP 96% Pharmacist 66.3% Nurse 52.1% Friends and family 28.6% Family support group 7.1% District nurse 4.1% Expert patient programme 3.6% Stop smoking service 3.6% Community group or support 3.6% group Health visitor 3.6% No services accessed 2.4% Slimming groups 2.4% Domestic abuse service 1.8% Psychiatrist 1.8% Health trainers 1.2% Healthy lifestyles hub 0.6% Percentages relate to respondents diagnosed with a long term condition and have made lifestyle modifications Multi response answer - base 86 40 Worcester Strengthening Healthy Communities – Final Research Report The following case study highlights a respondent who feels isolated and is dealing with long term conditions, including depression. Please note all case studies have been anonymised: Mary: female, age unknown, white British, rents from Nexus Housing, unable to work due to health reasons Mary was very complimentary about the service she gets at her GP surgery and could not think of anything that needed to be improved. She rates her physical health as very poor. She reports that she doesn‟t exercise as she struggles to breath. Mary is very overweight which causes her stress and upset. She is currently receiving support from health services regarding her physical and mental health. She also reports her mental health as very poor – she is on anti-depressants, has low mood and “can‟t be bothered”. The main thing that she would like to do to improve her general health and wellbeing is to improve her diet but she has not approached any services for help with this. Mary thinks that she could be helped by having more money to buy healthier food. Mary has been diagnosed with COPD and high blood pressure but feels she can still do her normal every day activities. She has accessed support from the GP, nurse, pharmacists and friends and family in relation to these conditions but would like to understand more about the actual conditions. Mary used to smoke until she was diagnosed with COPD. She was able to stop with help from a nurse at her surgery and used patches and gum. Mary does not currently volunteer in the community or help out neighbours or friends but she would like to join a support group for COPD to learn more about it and to get out of the house. She has never been to any local groups because she doesn‟t know what is out there and has difficulty getting around outside. She finds out about what is going on locally from friends and family and the newspaper. However, she feels very isolated, relies on one family member who gives little support and relies on public transport to get around anywhere. The main issues having an effect on her health and wellbeing are: money problems and debt, feeling isolated and a lack of support from friends and family. 4.3.4 Key questions to the steering group for initiative development How can support networks be fostered for people who feel socially isolated? What existing provision can be used to change perceptions of successful long term condition management away from a reliance on medication towards lifestyle modifications? How can low level mental health needs be addressed coupled with other lifestyle issues? How can existing capacity from within the community be harnessed to promote successful lifestyle management by buddying/peer support? 41 Worcester Strengthening Healthy Communities – Final Research Report 4.4 Health services Summary of health services In general, people seem to be relatively satisfied with the placement of health services and with the service they get from their GP. However, there appears to be significant concerns regarding when services are available demonstrated through unhappiness with the availability of appointments at their GP surgery and use of A&E because of convenience and availability. There also appears to be a low usage of NHS Direct, the GP out of hours service and the walk-in centre. The findings suggest that people find it difficult to access the GP out of hours service. People seem most happy with their health services when they can easily get to see a GP of their choice, who they have a personal relationship with and who they feel listens to them. Frustrations arise when they feel blocked from this by either availability or receptionists acting as gatekeepers and performing triage style questioning. The pharmacist appears to be a successful and positively thought of health service that is frequently used and could be a key avenue for health promotion. The dentist provision and use of the dental service in the area is low which could contribute to or be an indicator of general wider poor health and wellbeing. 4.4.1 Availability of health services Overall it appears that the majority of respondents (85%) think at least most services are available where they need them. However, a quarter of respondents do not think many services are available when they need them. Table 34 Q. In general, would you say health services are available where you need them? Response Yes all services Yes most services Neither No, not many services No, none of the services Percentage 29.6% 56.7% 4.5% 8.3% 0.3% Base: 314 Table 35 highlights that a quarter of respondents do not think that health services are available when they need them. This is reinforced in the qualitative data regarding attendance at A&E due to a perceived inaccessibility of other health services: 42 Worcester Strengthening Healthy Communities – Final Research Report “It was a weekend and didn't feel I could wait until I could see my GP” – presented at A&E as they felt the medication they were taking didn‟t suit them. Female, over 85, Warndon “I think if I could speak to a GP sooner and explain how I was feeling they may have been able to talk me out of my panic attack but when you phone NHS direct or out of hours GP you have to wait so long for a doctor to phone you back. Last time I phoned I was told I would have to wait four hours.” - presented at A&E as they thought they were having a heart attack and they were diagnosed with panic attacks. Female, 25-34, Rainbow Hill. Table 35 Q. In general, would you say health services are available when you need them? Response Percentage Yes, all of the time 22.3% Yes, most of the time 53.8% Neither 8.9% No, not very much of the time 13.4% No, none of the time 1% Base: 314 4.4.2 Use of health services The pharmacist is the most frequently accessed service, followed by the GP surgery. However, the A&E department at Worcester Royal Hospital was more frequently used than the walk-in centre, NHS direct, or the GP out of hours service. Nearly one third of participants don‟t ever to go the dentist - a marker of people not looking after their wider health and wellbeing. Table 36 Q. Over the past year, how often have you used any of the following health services in general? Name of service Often Sometimes Rarely Not used Pharmacist 50.2% 24.4% 11.9% 13.5% GP surgery 46.3% 29.7% 18.2% 5.8% Dentist 9.9% 28.8% 32.9% 28.4% WRH outpatients 8.1% 11.3% 19% 61.6% WRH A&E 5.2% 8.4% 29.2% 57.1% Worcester walk-in centre 4.2% 4.5% 17% 74.4% WRH Inpatients 2.6% 5.8% 14.8% 76.8% Ambulance or paramedics as 999 2.6% 5.5% 16.4% 75.9% NHS Direct 2.6% 9% 17.4% 71.1% GP out of hours service 2.2% 12.8% 20.5% 64.4% Base: 314 43 Worcester Strengthening Healthy Communities – Final Research Report Table 37 Percentage of people who have not used the service at all in the last year Name of service Percentage WRH inpatients 76.8% Ambulance or paramedics as 75.9% 999 Walk in 74.4% NHS direct 71.1% GP out of hours 64.4% WRH outpatients 61.6% WRH A&E 57.1% Dentist 28.4% Pharmacist 13.5% GP 5.8% Base: 314 4.4.3 Accessibility of health services Whilst the figures below show that the same services are “hardest” and “easiest” to access e.g. GP surgery and A&E, this is likely to be because these are some of the most used services. However, it does suggest there is a polarised opinion regarding accessing the GP service and A&E. Nevertheless, it appears that the pharmacist is regarded as being easy to use generally and the dentist as being hardest to access. Furthermore, WRH outpatients and the out of hours service appeared more difficult to access, even though they were used significantly less suggesting that there may be confusion about how these services are accessed. Table 38 Q. Which one health service do you find the easiest to access locally? (no more services were selected by above 5% of participants) Name of service Percentage GP surgery 52.0% Pharmacist 14.6% WRH A&E 10.3% Base: 314 Table 39 Q. Which one health service do you find the hardest to access locally? (no more services were selected by more than 5% of participants) Name of service Percentage GP surgery 30.9% WRH A&E 12.4% Dentist 11.8% WRH Outpatients 7% GP out of hours 6.4% Base: 314 44 Worcester Strengthening Healthy Communities – Final Research Report Concerns were raised by several participants regarding the provision of dentists in the area as demonstrated by one Community Champion‟s notes: “Dentists were a big concern – working people who don’t get free treatment never go as it is the last thing they can afford.” 4.4.4 Access to GPs The data shows a fairly polarised opinion between participants regarding the ease of getting an appointment with an almost even split between people who think it is at least fairly easy to get an appointment and people who do not. However, there were many more participants who think it is very easy than very difficult. Table 40 Q. How easy or difficult is it to get an appointment at your GP surgery when you need one? Rating Percentage Very easy 20.7% Fairly easy 35% Neither 12.7% Fairly difficult 20.7% Very difficult 9.9% Base: 314 4.4.5 Satisfaction with the GP service. The following figures at table 41 reveal a positive finding with two thirds of the sample being at least fairly satisfied with the help they get from their GP and only 3.5% being very dissatisfied. This suggests that there may be more of an issue with access to GPs than the actual GP service provision. Table 41 Q. Overall, how satisfied are you with the help you get from your GP? Rating Percentage Very satisfied 35% Fairly satisfied 38.9% Neither 13.7% Fairly dissatisfied 8% Very dissatisfied 3.5% Base: 314 45 Worcester Strengthening Healthy Communities – Final Research Report When asked further about what respondents felt worked well at their surgery, the appointment and booking service, the ease of getting an appointment and accessibility of appointments were frequently cited. However, respondents‟ responses to what needed to be improved at the GP surgery found frequent dissatisfaction with the appointment system with 35% of respondents wanting it to be easier to make an appointment and frequently people wanted more flexible appointments. Reception staff were also frequently cited as being barriers to GPs and respondents reported dissatisfaction about what they felt was receptionists asking personal details and acting as gatekeepers. The quotes below highlight some varying opinions about the appointment system. What works well: “Better with new [doctor/phone call] system can see somebody that day instead of waiting a week”. Elbury Moor “I like how the doctor rings you back to see if you do need an appointment, stops people wasting time.” Elbury Moor “Booking system [is] very good. You are able to speak with GP on same day generally & see them if needed. All staff are approachable & friendly. They give right advice & options.” Elbury Moor What needs to be improved: “Making an appointment .Having to tell the receptionist your problems before you speak to the Doctor.” Elbury Moor “The booking system needs a change. You have to wait to be phoned back and sometimes you can be waiting hours and never get an appointment with who you want, when you want.” Elbury Moor “The booking system if you don’t get through early you have to wait to be phoned back& you can be waiting hours. The receptionist can be snotty wanting to know what’s wrong with you. I don’t want to tell a receptionist I want to tell a doctor.” Elbury Moor “The booking system – cannot get appointments. Receptionists – unhelpful, rude, arrogant, nosey. GPs - feel rushed, palmed off with tablets”. Haresfield Surgery, turnpike “Have to wait to get through by phone for an appointment. I don’t like the fact that the receptionist asks many questions before being offered an appointment. I was offered a prescription for antibiotics for a flu like illness over the phone .I would rather have had a visit from the GP .I would have felt more content.” Elbury Moor “The booking system is not very good, as you have to explain your reason why you want an appointment with the receptionist before they tell you if you can have an appointment. And 46 Worcester Strengthening Healthy Communities – Final Research Report they aren’t even doctors or even trained to tell someone if they need to see a doctor.” Elbury Moor “Hard to get face to face appointments, been told to go to A&E in the past.” Elbury Moor The following quotes explain what people value about the GP service generally. “I always get an appointment when needed. My own doctor is so nice, kind, helpful and always willing to listen.” Albany House “They listen to what you have to say. They are prepared to listen and give time to the patient, and recommend further treatments or information.” Elbury Moor “When I do get to see my own doctor he helps me, understands me, and knows my needs.” Elbury Moor 4.4.6 Key questions to the steering group for initiative development How can alternative health care provision be promoted more successfully to increase use and appeal to the people living here? How can existing front line staff such as receptionists, or pharmacy provide sign-posting to other services? 47 Worcester Strengthening Healthy Communities – Final Research Report 4.5 The use of A&E Summary Use of A&E Most people have been to hospital as an unplanned visit and most people believe that this was not in relation to a long term condition. Heart and chest related incidents and strokes are prominent reasons for attendance at A&E. There is a significant number of instances related to mental health and wellbeing causing trips to A&E as well as other lifestyle indicators to do with drugs and alcohol. A&E is seen as more accessible and an alternative when the GP hasn‟t been able to help or when someone has reached crisis point. Under 50% of respondents state that they were given advice about how to prevent future trips to A&E Over half of the respondents (57.4%) think that their trip to A&E could not have been prevented. 4.5.1 Prevalence of unplanned attendance at A&E Most people have had an unplanned attendance at hospital. (51.9%) and most of these people do not believe this attendance was related to a long term condition. When excluding accidents, the data shows the prevalence of heart/chest related illnesses and strokes as reasons for these visits. However, other than these, the most common reasons are either mental health related or lifestyle driven, highlighting again the needed to look wider at health and wellbeing. A breakdown of the people who stated they were frequent attendees at A&E showed that 50% of these respondents found it at least fairly difficult to get an appointment with their GP and also found that services were not available to them at the time they needed. Of these respondents who were frequent attendees at A&E, 81.3% described their physical health as fair or below and 50% described their mental health as fair or below. 81.3% had also been diagnosed with a long term condition, the most prevalent of which was asthma, with 37.5% of the people who stated they frequently attended A&E stating they had asthma, followed by 31.3% having depression/anxiety and 25% having diabetes and hypertension. Of these respondents, 62.5% did not see their trip as preventable. Whilst all age ranges feature in these respondents, there was a higher proportion of people in the 45-54 age bracket who were frequent attendees at A&E. 48 Worcester Strengthening Healthy Communities – Final Research Report Table 42 Q. Have you ever had an unplanned admission/attendance to hospital? (as an adult only) Answer Yes, called 999 Yes, took myself to A&E Yes, sent by my GP Yes, other route No Percentage 25.6% 25.6% 13.4% 4.2% 48.1% Multi response question, base 314 Table 43 Q. Was the last time in relation to an LTC? Answer Percentage Yes 36.1% No 63.9% Percentages relate to respondents diagnosed with a long term condition who have had an unplanned attendance/admission at hospital Base: 155 Table 44 Common reasons for going to A&E Reason Percentage Accident 23.9% Chest/heart pains 14.7% Stroke 4.3% Mental health issues 4.3% Self harm/attempted suicide 4.3% Alcohol related issues 3.7% Ran out of medication/did not control condition well enough Drug overdose 3.7% 1.2% Percentages relate to respondents who have had an unplanned attendance/admission at hospital Base: 163 4.5.2 Advice and prevention Over half of the participants state they either weren‟t given advice or didn‟t know if they were given advice whilst at A&E. However, where they were given advice, they generally found this helpful. 49 Worcester Strengthening Healthy Communities – Final Research Report Table 45 Q. After you were treated, were you given any advice about how to manage the situation that led to you going to hospital? Answer Percentage Yes 49% No 44.6% Don‟t know 6.4% Percentages relate to respondents who have had an unplanned attendance/admission at hospital Base: 163 Nevertheless, that less than half report they were given advice could impact on whether they see the trip as preventable and impact on subsequent behaviour - most people (57.4%) do not see their trip to A&E as preventable. Table 46 Q. Do you think this trip to hospital could have been prevented? E.g. could you have gone elsewhere for treatment or could you have followed advice earlier to prevent the emergency situation? Answer Percentage Yes 27.7% No 57.4% Maybe 14.8% Percentages relate to respondents who have had an unplanned attendance/admission at hospital Base: 163 The following quotes expand on some of the respondents‟ thoughts about their use of A&E. As these quotes demonstrate, it appears that there is a reliance on A&E due to its availability all the time and a lack of education or willingness to use other routes. There is also a suggestion from the qualitative data that if health conditions were managed better earlier, such as managing medication or managing lifestyle issues such as stress before they get to crisis point, some of these visits could be prevented. Quotes from respondents who do not think their trip to A&E wasn‟t preventable: “The medication I was taking didn't suit me. It was a weekend and didn't feel I could wait until I could see my GP.” Female, 65+, Gorse Hill. “I attended A&E because of increased pain levels that the tablets weren’t helping with. I was told to go to the GP to talk about it. Advice was not useful as the GP hadn’t been very helpful. Nothing more I could do & I had to be seen immediately.” Female, 25-34, Rainbow Hill. Quotes from respondents who think this trip to A&E was preventable: “I ran out of medication & pain was really bad. I could have used the out of hours GP service, or been better at keeping tablets in stock.” Female, 45-54, Gorse Hill 50 Worcester Strengthening Healthy Communities – Final Research Report “I had an infection in my foot, so took myself to A & E. I could have gone to a walk in centre, but thought they would just send me to A & E, so I went there first.” Male, 18-24, Gorse Hill “I had a panic attack but thought I was having a heart attack. I think if I could speak to a GP sooner and explain how I was feeling they may have been able to talk me out of my panic attack but when you phone NHS direct or out of hours GP you have to wait so long for a doctor to phone you back. Last time I phoned I was told I would have to wait four hours” Female, 25-34, Rainbow Hill Quotes from respondents who are unsure whether the trip to A&E was preventable: “When I was very low in my life I self harmed. If I had someone to talk to, to say how I was feeling at the time. I had no one. I could only see self harm.” Female, 25-34, Warndon “I had severe chest pain and difficulty breathing. If the doctor gave me the tablets I needed, I wouldn't need to go.” Female, 45-54, Gorse Hill “I had an infection for 3 weeks in my leg. I was told to attend my GP but I didn’t. It was quickest at hospital.” Female, 45-54, Warndon. The following case study highlights the complex needs of one respondent who has attended A&E who has been diagnosed with physical and mental health long term conditions. Please note, all case studies have been anonymised: 51 Worcester Strengthening Healthy Communities – Final Research Report Shirley: Female, 35-44 White British, rents from Nexus Housing, unable to work due to health reasons Shirley is a frequent visitor to the GP, A&E and the pharmacist. She thinks that the doctors and nurses are nice but she doesn‟t like having to tell the receptionist her problems before she can make an appointment as it puts her off. She feels there is a big need for improvement with the reception staff and the booking system. Shirley thinks her physical health is poor and could be improved by doing more exercise and eating healthily. Whilst Shirley doesn‟t eat any fruit and vegetables, she reports that she exercises every day. She thinks she is managing her physical health successfully on her own. She rates her mental health as very poor and has suffered from depression from the age of 15. However, she is not accessing any support for this and thinks she is managing her mental health successfully on her own. Shirley currently smokes and has tried to give up in the past but found it too hard. She thinks that giving up smoking is the one thing she would like to prioritise. Shirley thinks the main thing that would help her to do this would be to lead a stress free life. Shirley has also been an alcoholic and drug user when she lost her mum. Shirley has been diagnosed with asthma, depression and she has previously had a stroke. She thinks people have a lot of control over their own health, she is able to live independently and access all the support she needs, she feels she fully understands her conditions and she has not changed her behaviour or lifestyle since being diagnosed with her long term conditions. Shirley attended A&E as an emergency when she had a stroke and reported feeling very emotional. She does not see a stroke as being preventable and she felt she already knew the advice they gave her which was to take it easy and avoid stress. Shirley currently does not participate in any voluntary work, feels strongly that she is not part of a community and does not want to get involved further in the community as she prefers “not to get on with the people who live around here”. She feels that she helps out her family by teaching her children to say no to drugs and to help elderly people. She also states that she didn‟t know about the local services on offer at community centres. The only way that she finds out about things locally is through the newspaper. The main issues that Shirley feels affects her health and wellbeing are anti-social behaviour, drugs and alcohol problems and housing problems. 4.5.3 Key questions to the steering group for initiative development How can we create effective messages to break the social norm of attending at A&E? What mental health and stress management tools can be used to support people within the community before crisis point? How can we make alternative health care provision feel more accessible to the community? 52 Worcester Strengthening Healthy Communities – Final Research Report 4.6 Community Summary of Community Most people are ambivalent or apathetic about belonging to the community and the level of volunteering is low. There is little desire to be more involved in the community – but a significant minority (24.4%) do want to become more involved. The level of informal volunteering within informal small community settings is high and is something that could be developed. When groups are used, the effects are positive, particularly in relation to increasing socialisation, confidence and mental health. Generally, people who don‟t already use groups do not see the benefit of them. Communication needs to be targeted through informal networks but also thought needs to be given to reaching out to socially isolated people. Communication needs to appeal to people at a neighbourhood level. There are many “life” barriers to getting involved including money, employment worries and lack of time. 4.6.1 Current views of the community There is polarised opinion about whether respondents feel part of the community, with a significant number of people who do not have strong feelings either way, suggesting there may be apathy and that these people could be encouraged to feel part of a community by targeting efforts appropriately. Of the wards, Warndon have the most respondents who feel part of a community, whereas Rainbow Hill have more respondents that are undecided about feeling part of a community. Table 47 Q. Thinking about the area you live in, how much do you agree with the statement “I feel part of a community?” Answer Percentage Strongly agree 12.7% Agree 23.6% Neither 34.7% Disagree 16.2% Strongly disagree 11.8% Base: 314 53 Worcester Strengthening Healthy Communities – Final Research Report 4.6.2 Current community involvement The numbers for respondents who currently participate in voluntary work are low (17.8%). NCVO (2013) reports that 39% of adults in England volunteered at least once in the last 12 months and 25% of adults volunteered formally at least once a month. Considering that a considerable amount of this research was conducted in community settings, an assumption is that this reported figure is higher than the general population for the wards. Unsurprisingly, more people of retired age volunteer. However, the 25-34 age range is particularly low. At the Ward level, rates of volunteering are low in Rainbow Hill, which is inverse to the levels of health deprivation. Table 48 Q. Do you currently participate in any voluntary work? Answer Percentage Yes 17.8% No 81.2% Base: 314 Table 49 Percentage of people who currently volunteer split by ward. Ward Percentage Warndon 17.9% Gorse Hill 22.2% Rainbow Hill 11.8% Homeless 20% Percentages relate to number of respondents from each ward Base: 314 4.6.3 Current informal community involvement Whilst the level of formal volunteering in the community is low, an interesting and promising statistic is that 70.8% of respondents already support people at a neighbourhood or family and friends level suggesting there is a lot of positive collaboration in the community at an informal level. This could be useful in terms of how support or initiatives are structured to appeal to a neighbourhood/family level rather than a “community”. Table 50 Q. Do you give help or support to neighbours, friends or family in the local area? Answer Percentage Yes 70.8% No 29.2% Base: 314 54 Worcester Strengthening Healthy Communities – Final Research Report The following quotes illustrate some of the ways people give support to their neighbours friends or family. “I help anybody locally who needs help.” Male, 65+, Warndon. “I help my neighbours, I walk the dog when very cold or if they are not well. They know I'm there if they need anything. I'm always helping my parents as they are getting on a bit & always on the go after my sons.” Female, 45-54, Rainbow Hill. “I help an elderly neighbour - when I cook myself I do her a meal. I help family collect grandchildren from school. I would help anyone who needed help.” Female, 65+, Rainbow Hill, “I work long hours to keep a roof over my family’s head. So don't have time for much. I do put out neighbours bins and mow their grass when they are away but I should think most neighbours do that sort of thing.” Male, Warndon. “I listen to neighbours & friends problems & try & help”. Female, 65+, Gorse Hill. “I visit a neighbour each morning & collect her shopping from shop. I visit another friend who lives nearby daily. I put eye drops in for her & help with chores she cannot cope with.” Female, 65+, Rainbow Hill. 4.6.4 Appetite for further community involvement The findings are not very encouraging in terms of appetite for community involvement. Nevertheless, a quarter of respondents do want to become more involved in the community, which is hopeful. This general reluctance to be involved could be linked to the way community is thought of as most people are involved in their “small” community but don‟t volunteer in the wider, more formal version of community. However, it could be due to other wider pressures on respondents, such as a lack of time. Whilst there are clear suggestions on ways some respondents can be encouraged to participate that include raising awareness and making the process simple, overwhelmingly people do not want to get involved and the people that are already involved generally feel at full capacity. The importance of “no time” is useful to reflect on when considering the initiatives to make them realistic to other pressures on people. Table 51 Q. Would you like to be more involved in the community? Answer Percentage Yes 24.4% No 75.2% Base: 314 55 Worcester Strengthening Healthy Communities – Final Research Report Table 52 Reasons why people don‟t want to get involved/would make it easier to get involved. Reason Percentage Nothing, I do not want to get 64.8% involved Greater awareness of 10.6% opportunities Make it simpler to get involved 10.6% Already involved enough 5.5% Work too long hours/have no 5.1% time Broader range of roles 4.7% Involve a wider range of 2.9% people Cover expenses 2.2% Don‟t like the people around 2.1% here Percentages relate to respondents who answered that they would not like to be more involved in the community Multi response question – base 236 4.6.5 Use of existing services Most people have not visited any community services/local groups, and this figure is probably higher for the general population throughout the study area as much of this research was conducted in community settings. When people have used services in the community, the difference this makes to them is positive and again reinforces the theme that socialisation and being part of a support network enhances mental health and general wellbeing: Table 53 Q. In the past year, have you visited or used any services provided by local groups? Answer Percentage Yes 39.5% No 59.6% Base: 314 56 Worcester Strengthening Healthy Communities – Final Research Report Table 54 Top places visited Name of centre KGV community centre Children‟s centres Warndon Community Centre Tolladine Community Centre Fairfield Education Centre Furness social club Churches Stop smoking services Slimming clubs Percentage 15.9% 11.5% 6.1% 4.8% 4.5% 3.8% 2.2% 1.9% 1.6% Multi response. Base: 314 The following quotes illustrate some of the positive effects community and voluntary groups have had: Children‟s centres: “Chance to meet other parents & for the kids to play which is important to mental health.” – Female, 25-34, Gorse Hill. KGV: “Grandee club - as I have moved to the area recently I find it has helped me settle into my new home & stopped my feeling isolated. I have made many friends at the club.” Female, 65+, Warndon. “KGV Slimming world - I did lose weight but put it back on, I made friends. Looked forward to a morning out” Female, 45-54, Gorse Hill. Homeless provision: “Helps to make me more confident & perhaps helps to take my anger away.” Male, 18-24, homeless. Churches “I go to church there .I have lots of friends. It's my faith it's the centre of my world. I feel part of a family.” Female, 45-54, Gorse Hill. Support groups “My group of friends/ buddies who are all in the same boat as me, we experience same difficulties in life.”Male, 45-54, Warndon. Fairfield Education Centre: “Somewhere to go if you are short of money, I like being social.” Female, 25-34, Warndon. 57 Worcester Strengthening Healthy Communities – Final Research Report The following case study is an example of someone who is struggling with physical and mental health issues but reports the benefit of being engaged in the community. Please note, all case studies have been anonymised: Jackie – female, over 65, White British, living in nexus sheltered housing, retired Jackie is a frequent visitor to the GP and as an inpatient and outpatient at WRH. She finds the outpatients service at the hospital the hardest service to access and the A&E department the easiest. She finds the main problem with her GP surgery is the amount of time she has to wait for an appointment. “You can sometimes be waiting hours for a call back and then you never get an appointment with who you want, when you want.” Jackie describes her physical health as fair and her mental health as very good, she regularly exercises and eats three to four portions of fruit and vegetables a day. Jackie would like to do more exercise but has not approached any services for any help with this. She worries that she cannot do exercise because of her arthritis and pain so would like to find some exercise classes that would be suitable for her. She has previously attended a slimming world group but stopped going after her friend who took her stopped going and she found it difficult to get to and didn‟t want to go on her own. Jackie has been diagnosed with asthma, diabetes, hypertension and arthritis. She feels that she can manage these conditions successfully on her own by taking tablets and using inhalers. She has only used the GP, nurses and pharmacists for help with her conditions but admits that she only understands her conditions “a little”. Since these diagnoses, she has changed her diet and stopped smoking. Jackie used to be a smoker but she gave up when she was diagnosed with asthma. She gave up on her own without any help after suffering from a bad chest infection. Jackie attended A&E most recently after ringing 999 with chest pains. She was not admitted and told to visit her GP to get her asthma checked out. Whilst she does not think that this trip to hospital was directly related to her asthma, she does think that the trip could have been prevented if she had more advice on what to do if her asthma was “getting bad”. Jackie strongly feels part of her community and currently volunteers by helping her sheltered housing group at lunches and coffee mornings. She feels that everyone in the sheltered housing community helps each other out and it is a friendly place to live. She finds out about what is going on locally through friends and family, housing services, the internet and the “what‟s on” guide. She feels the biggest issue affecting her general health and wellbeing is the lack of public transport and is concerned about her grandchildren who she believes may be taking drugs. 58 Worcester Strengthening Healthy Communities – Final Research Report 4.6.6 Barriers to the use of voluntary and community groups The following are the most frequent reasons for why people do not currently attend any community/voluntary groups: Table 55 Reasons why people do not attend groups Reason Percentage No need 27.8% Not enough time/other work/life 25.1% commitments Don‟t know about them 9.6% No interest 9.6% Don‟t feel able to due to health 5.3% Nothing geared towards me 2.7% Scared/fear 1.6% Percentages relate to respondents who do not attend groups Multi response question: base 187 The following quotes expand upon some of these reasons: “Didn't realise what was or is on offer. Don’t always have time as I work part time, single mum to two children and help a neighbour.” “Lack of time, not really any services that are available are of my interest.” “Don't feel up to it, not always in the right frame of mind.” One of the Community Champions, Sanne, explains what she found surprising about the research: “What surprised me most was that there are so many people living within the community that would like to get more involved but either can’t because of working long hours or do not have a great awareness of how to get involved. And others, who would like to live more healthily but lack motivation in doing so – or keep putting things off for another day!” The following case study illustrates one respondent‟s opinions towards her community and potential reasons why she does not want to get further involved. Please note all case studies have been anonymised. 59 Worcester Strengthening Healthy Communities – Final Research Report Julie: Female, 35-44, White British, works full time and rents from WCH Julie is positive about the GP service she receives and likes the fact that she can get to see her GP on the same day if it is needed. However, she finds it difficult that the prescription service takes 3 days and that it has to be done in person and she find it harder to see a nurse. Julie rates her mental health as poor and attributes this to having an exhausting and stressful job and a busy family life where she finds it hard to have “me time”. She is currently receiving support from health services regarding her mental health and has been diagnosed with depression, however, she has not changed her behaviour or lifestyle since this diagnosis. Julie acknowledges that her diet is not very healthy and she is a bit overweight. She reports that she eats one to two portions of fruit and vegetables a day but she does exercise frequently. In particular, she would like to improve her diet and states that in the past she has used the GP, nurses and pharmacists to help with this. She has also attended a slimming group. She feels the main way her health and wellbeing could be improved would be to be able to afford the gym and to afford healthier foods. Julie used to smoke and has successfully given up. This was triggered by having bronchitis and she used support from the local pharmacy to give up at this time. Julie has been smoke free for 5 years. Julie has family members that have been affected by drug and alcohol misuse, including one brother who died as a result of drug dependency and a father who suffered all his life with addiction. Whilst Julie does not volunteer in the community, she helps out and cares for a lot of family members. She would like to be more involved in the community, in particular to have more of a say regarding anti-social behaviour, housing, addiction and safe-guarding. She doesn‟t currently access any local voluntary community groups or centres because she doesn‟t feel like it is for her. She associates community centres with “unemployed and needy families and troublesome families”. The main things that are having an effect on Julie‟s health and wellbeing are; drugs and alcohol, anti-social behaviour and money problems/debt. Julie is concerned for the future of her grandchildren that they will not have any work when they are older. 4.6.7 Advertisement of local community and voluntary groups It appears that the most effective ways of reaching people are through informal networks of friends and family and word of mouth with a combination of using the newspaper and the internet. However, this should be viewed in the context of the data about isolation or a lack of social support being a factor towards poor health and wellbeing, so ways of informing people need to work on other means rather than word of mouth. However, again, it does show that there are potentially strong informal social networks in the community that could be tapped into. 60 Worcester Strengthening Healthy Communities – Final Research Report Table 56 Q. How do you find out about what is going on locally? Source Percentage Friends/family (or word of 62.4% mouth) Newspaper 47% Internet 35.1% Schools 13.4% GP/health services 9.6% „Our happy place‟ what‟s on 9.3% guide Housing services 5.4% Leaflets 3.2% I don‟t find out about things 2.6% Multi-response question, base 314 One of the Community Champions, Becky, observed that services were not well known about: “I was surprised at just how many facilities are accessible locally. Children, over 55s and mums with younger children felt the area had a lot to offer if they went out to look for it – advertisement is bad.” 4.6.8 Key questions to the steering group for initiative development How can initiatives be structured to appeal to “small” definitions of „community‟ and informal ways of helping, rather than formal community volunteering? How can the promotion of existing initiatives and services be more joined up and more effective at engaging people by using influential and positive role models from within the community? How can we best use a variety of media to promote services based on the research findings? 61 Worcester Strengthening Healthy Communities – Final Research Report 5 Workshops 5.1 Community asset mapping An asset mapping workshop was held on April 23 rd at the Tolladine Community Centre. 5.1.1 What is community asset mapping? Community asset mapping is about identifying the assets and positive attributes of a neighbourhood and viewing these as opportunities to do things differently. The approach is part of what is known as Asset Based Community Development (ABCD) techniques. According to Foot and Hopkins (2010), ABCD is a set of values and principles which: - Identifies and makes visible the health enhancing assets of a community Sees citizens and communities as the co-producers of health and wellbeing, rather than the recipients of services Promotes community networks, relationships and friendships that can provide caring, mutual help and empowerment Identifies what has the potential to improve health and wellbeing Supports individuals health and wellbeing through self esteem, coping strategies, resilience skills, relationships, friendships, knowledge and personal resources Empower communities to control their futures and create tangible resources such as services, funds and buildings. For the purpose of the Strengthening Healthy Communities project, assets can be broken down into four broad groups: Physical assets – shops, buildings, community centres, libraries, health centres etc. Structured Social assets – people, activities, groups, support groups, community, health initiatives Informal social assets – neighbours, support networks, peer support, local knowledge, individual knowledge of illnesses, parenting, substance misuse, local history Green space – parks, gardens, sports facilities, open spaces 5.1.2 Outcomes from the asset mapping workshop Front-line stakeholders from the local community were invited to participate in the asset mapping workshop (full list of delegates to be found in appendix 2). Delegates included: Community Champions Local health professionals Local police and housing officers Staff from Worcester Community Trust Local education staff 62 Worcester Strengthening Healthy Communities – Final Research Report Councillors Representatives from Worcester Council Participants mapped and logged the resources, skills, talents of individuals, community groups and institutions. The biggest assets Transport – community transport, bus routes. Vast amount of activities take place in each of the community centres. Informal social assets are intangible and hard to draw up on a map but are recognised as assets “Internal” assets of people are key e.g. motivation, resilience, emotional intelligence, aspirations, skills All sports, play and arts and community activities available for free or low cost Drugs=biggest problem, how to turn into positive: drug education, pathways and survivors Us – the people! The area is very close to the city centre and service assets Ideas for initiatives Cooking and skills – intergenerational skill sharing in cooking project and to help ASB/dynamics of the community. Professionals‟ notice board or chat room to share contacts and ideas. Peer mentors to support those recently diagnosed with long term conditions. Volunteer or paid gatekeepers, vcs contacts in GP practices to help support patients with low level needs e.g. isolation. Face to face – Use a trailer for information and to signpost to the community centres – let people come to you and ask. Understand the “culture” of Tolladine. Very close knit and loyal to its own identity. Respect the people‟s perception of their neighbourhood – health services need to be local. Continue employing the champions – don‟t let it fizzle out. Use a navigator for services. The fundamental outcome from the workshop was identifying that there are many existing assets in the area, including the provision of healthy lifestyle services and initiatives, however, there was a recognition that these are not well accessed within the community and knowledge of how the assets join up within the community with existing providers is low. 5.1.3 Subsequent workshops It is envisaged that there will be further service design workshops held in order to develop the initiatives. This will include inviting members who work in the local community, Community Champions and local residents who indicated that they wished to be kept informed about the development of new local initiatives as a response to the research. The workshops will enable the initiatives to be developed as a response to the research findings and led by people working and living in the community to ensure they are as relevant and successful as possible. 63 Worcester Strengthening Healthy Communities – Final Research Report 6 Recommendations to the Steering Group The following recommendations are derived as a response to the research findings and are intended to be considered by the steering group when looking at the development of initiatives. The steering group should bear in mind that at least one initiative needs to be long term condition specific and that there is a proposal that three initiatives are developed. The steering group are reminded that the overall aims are to look at ways of reducing health inequalities, ways for people to better manage long term conditions and to prevent long term conditions from developing. 6.1 Recommendations 6.1.1 Objectives These objectives have been generated in direct response to the research findings contained in this report. The proto-type community projects should focus on one or more of following objectives: To increase the use of appropriate health care provision and reduce the use of A&E. To increase the amount of positive lifestyle changes for long term condition management rather than reliance on medication. To increase socialisation and co-dependency in the community. To develop community capacity to learn from people who have lived experiences of long term conditions, mental health, substance misuse and managing debt. To increase people‟s perceptions of what a healthy lifestyle should be for them. To promote better mental health – and higher expectations for mental health- for people of all ages within the community. 6.1.2 Approaches The proto-type community projects should take the following issues into consideration: The Community Champions are a useful resource that bridge the gap between members of the community and services which is unique compared to the way existing services are currently structured. Look to include community champions where possible. There are many existing services that tackle health management either directly or indirectly but they are not widely used and appear not to be joined up. The initiatives could look at ways to promote these existing assets better, how they might work together and ensure they are relevant to the community and advertised to the community appropriately. In particular, this could focus on ways to increase the use of alternative health care provision outside of the GP, pharmacist and A&E by looking into the way these are advertised and promoted and the issues of when they are available. 64 Worcester Strengthening Healthy Communities – Final Research Report This could also include the promotion of cheap or free healthy lifestyles initiatives focussed on diet and exercise to break the perception that people can‟t afford healthy lifestyles. The initiatives need to recognise the wider influences on health and lifestyle management including stress, money problems and debt, substance misuse and mental health and incorporate proposed outcomes of increased socialisation within the community. The long term condition specific initiative could be based around asthma and/or heart conditions as this was the most prevalent in the study and also accounted for reasons presenting at A&E. This should focus on promoting lifestyle management above medication. Promoting mental health and wellbeing should be direct and indirect outcomes for all initiatives. This could be coupled with increasing the expectations people have for their physical and mental health. Consider using peer support and identifying community experts to foster increased socialisation and community spirit together with promoting healthy lifestyles. This could include members of the community who face similar issues to that in the research, rather than being completely successful at managing their health. Structure initiatives to appeal to a neighbourhood level and be relatively informal to ensure that people feel connected to them and to foster co-dependency. Promotion of the initiatives needs to be carefully looked at but should include elements of word of mouth and use of informal social networks but also include a strategy to reach out to the socially isolated. Consider using pharmacies as hubs for the promotion of initiatives. 6.2 Next steps 6.2.1 Development of initiatives The initiatives will be developed as a response to the recommendations in the report initially by the steering group. These recommendations will then be taken forward to further development and design by community members and front line staff, supported by Turning Point. 6.2.2 Design workshops Design workshops for the proposed initiatives will be held with interested members of the local community and front-line staff to ensure that the initiatives are responsive to the community. The workshops will use the information within this report, including the recommendations to gather feedback from the people living and working in the community. The format of the workshops will include break-out groups where people will have the opportunity to directly feed into planning and development. 65 Worcester Strengthening Healthy Communities – Final Research Report 6.2.3 Promotion at community events Community Champions and members of the steering group will continue to promote the project and the proposed initiatives throughout the community at appropriate events to gather feedback and foster interest. 6.2.4 Piloting of initiatives Once the initiatives have been developed, they will be piloted for a period of at least 3 months. This will be followed by an evaluation and final report. 66