April/May/June 2007 - National Multiple Sclerosis Society

APRIL / MAY / JUNE
Chairperson’s Message p. 2
Support Groups p. 19
Research Highlights p. 4
Calendar of Events p. 20
2007
HER LIFE DOESN’T HAVE TO BE
PICTURE PERFECT TO BE VIBRANT
By Caitlin Finn, Public Relations Intern
more women than men – three times
as many. The disease is unpredictable
and it affects each person differently.
Symptoms can include tingling and
numbness in the extremities, fatigue,
changes in vision, imbalance, pain,
speech impairment, and, in some
cases, complete paralysis.
Despite her prognosis, Bergen refused
to be defeated and rallied with the
support of friends and family. One
month after her diagnosis, friends
visited and planted trees at her home
as an ever-present testament of care
and support. For Bergen, the gesture
also served as a reminder that peace
and tranquility remained within reach.
I
Marilyn Bergen takes a moment to reflect in her Branford, Conn., home.
f art imitates life, then Marilyn
Bergen’s life was almost picture
perfect. Her home is the ideal
setting for retirement, nestled on the
water’s edge in the town of Branford,
just a few miles from where she grew
up in Guilford, Conn. The backdrop,
peaceful and serene, is emulated in the
tranquil paintings adorning the walls
of her quaint New England cottage,
allowing one to completely escape
the trappings of day-to-day existence.
Yes, life was picture perfect for
Bergen – but then reality, as it often
does – knocked on the door. After
experiencing a persistent cold with
flu-like symptoms, Bergen awoke
one morning to find herself extremely
weakened on the left side of her body,
she knew something was seriously
wrong. Initially, doctors labeled it a
virus of unknown origin, but only one
year later Bergen experienced major
fatigue and vision problems. Doctors
determined she was suffering from
optic neuritis. Another six months
passed before Bergen experienced her
third exacerbation of severe fatigue.
At that point she was scheduled for
an MRI, which led to a diagnosis
of multiple sclerosis (MS). Over the
course of little more than one year,
Bergen’s once nearly perfect life
had become anything but.
There are more than 6,000 Connecticut
residents, like Bergen, battling the
mystifying effects of multiple
sclerosis. The cause is unknown, and
there currently is no cure. According
to statistics, multiple sclerosis affects
“I remember feeling disheartened,”
Bergen related, as she gazed out a
nearby window at the serene beauty off
in the distance. “It was the first time
in my life that I was not able to take
part in something, but the way my
friends and family were there for me
is a memory I will treasure. Their
support has taught me to be grateful,
to appreciate the fragility of life, and
to not take anything for granted.”
Bergen did her best to maintain the
same lifestyle she enjoyed before her
diagnosis. She turned wholeheartedly
to her passion for music and literature,
finding comfort and strength in the
wisdom carefully recorded between
the pages of her favorite narrative.
Her music collection rejuvenated
her spirit, body and mind. In these
moments, Bergen knew all was not
lost and there would once again be
moments in time when life would
be close to picture perfect.
(Continued on page 7.)
APRIL / MAY / JUNE
C H A I R P E R S O N ’ S M E S S AG E
2007
MS STOPS PEOPLE FROM MOVING.
Publication of the National
Multiple Sclerosis Society,
Greater Connecticut Chapter
Editor in Chief: Melissa Saranitzky
[email protected]
860.714.2300
1.800.FIGHT MS (344.4867)
Fax 860.714.2301
www.ctfightsMS.org
www.nationalmssociety.org
Chairperson, Board of Trustees
Jennifer L. Cox, Esq.
Lisa Gerrol
President and Chief
Professional Officer
860.714.2300, ext. 231
Cheryl L. Donati
Executive Vice President
860.714.2300, ext. 225
COMMUNICATIONS
Karen E. Butler
Vice President of Communications
860.714.2300, ext. 230
PROGRAMS & SERVICES
860.714.2300
FUNDRAISING – LEADERSHIP
Kara Preston
Development Director
860.714.2300, ext. 233
FUNDRAISING – MASS MARKET
Nicole Tobin Marohn
Associate Vice President
860.714.2300, ext. 244
FUNDRAISING – MASS MARKET
Michelle Zimnoch
Special Events Director
860.714.2300, ext. 234
Member Charity
www.chcct.org
02
WE EXIST
TO MAKE SURE
IT DOESN’T.
I
JOIN THE MOVEMENT
n November, it was my privilege
to attend the society’s National
Conference, where the new
brand platform was unveiled by
the international ad agency
Wieden+Kennedy. Last month,
in conjunction with MS Awareness
Week, the new brand platform was
strategically launched nationwide.
Our new brand platform unites us,
energizes us and enables us to move
forward together. And, although we
have a new identity, the mission
remains constant. We are one society
united to end MS and help all those
impacted by the disease continue to
move their lives forward.
As a result of this new initiative, the
society, with the amazing talent of
Wieden+Kennedy, has successfully
found a way to create connections
among people with MS, their families
and friends, colleagues, partners and
communities nationwide.
Each of these groups has different
interests and concerns. To bring them
to our cause, we need to engage with
them a common and fundamental and
universal notion – one with which
everyone can identify. This common
notion has become the basis of the
society’s brand platform.
Moving is universal. However, those
with MS know something about
S
CALL TO ACTION
Jennifer L. Cox
moving that most of us don’t
understand. Moving is not a guarantee.
The society helps address the
challenges of living with MS by
enabling each person whose life is
affected to stay connected to the
“great, big, moving world.” The society
is moving research forward – moving
closer to a world free of MS – moving
lives forward through awareness,
connections and participation.
We have been called to action and
invited to Join The Movement. There
are many opportunities available
from within the society that can help
move us closer to a world free of
MS. I encourage you all to become
increasingly invested and involved.
The Greater Connecticut Chapter
will host the 2007 Travelers MS
Walk, presented this year by
UnitedHealth Group, at eight sites
across Connecticut on Sunday, April
22, and at a ninth site, Woodstock,
on Sunday, April 29. Register online
today, and get ready to step out with
thousands of others. Every step you
take makes a difference for someone
for whom movement has become
just a memory.
Remember, when you join the
movement, you become part of a
collective of passionate individuals
who want to do something about
multiple sclerosis NOW.
tudies show that early and ongoing treatment with an FDA-approved
therapy can reduce future disease activity and improve quality of life for
many people with multiple sclerosis (MS). The National Multiple Sclerosis
Society’s medical advisors recommend that people with MS talk with their
health care professional about using one of these medications and about
strategies and effective treatments to manage symptoms. The National Multiple
Sclerosis Society is committed to ensuring that people with MS have the
information and quality care that they need to live healthy, productive and
independent lives. If you or someone you know has MS, please contact the
National Multiple Sclerosis Society today at www.nationalmssociety.org or
1.800.FIGHT MS to learn about ways to help manage multiple sclerosis and
about current research that may one day reveal a cure.
Toll-Free Number: 1.800.FIGHT MS
APRIL / MAY / JUNE
2007
MS VACATION WEEK HELD IN JUNE
CHAPTER NEWS
participate in activities they normally
do not have the opportunity to do,”
said Amy Watkins, Chapter Programs
Coordinator. “Our chapter members
always enjoy the activities. Participants
meet other people, form friendships,
have fun and engage in challenging
activities in a supportive atmosphere.”
T
he Greater Connecticut
Chapter’s annual MS Vacation
Week offers an opportunity for
individuals diagnosed with multiple
sclerosis (MS) to enjoy summer and
take a relaxing break from their
regular routines.
This year’s MS Vacation Week will
be held at Camp Hemlocks in Hebron,
Conn., from Sunday, June 17 through
Friday, June 22. Camp Hemlocks is
The fee for the five-day program
is $395 and includes lodging, meals,
activities and limited personal care
assistance. Financial assistance is also
available to those who qualify.
a fully accessible camping facility
featuring an indoor pool with lift and
a 22-acre lake, located just 25 minutes
from Hartford.
Activities include arts & crafts, water
activities, exercise programs and a
talent show.
“This program allows individuals
with MS to have a vacation in a
totally accessible environment and
Visit our Web site at: www.ctfightsMS.org
Volunteers will be available for light
assistance with transfers, dressing and
pushing wheelchairs. Those requiring
more than minimal assistance must bring
a personal care assistant (PCA). The
Greater Connecticut Chapter will waive
food and lodging costs for PCAs.
The registration deadline is Friday,
May 11. For more information,
please contact Amy Watkins,
Chapter Programs Coordinator,
at 860.714.2300, ext. 247 or visit
www.ctfightsMS.org.
03
APRIL / MAY / JUNE
2007
SOCIETY AWARDS $44,000
TO SUPPORT LOCAL RESEARCH
T
he National Multiple Sclerosis
Society awarded a grant
for $44,000 to fund a pilot
research project at the University of
Connecticut (UConn) Health Center’s
department of medicine in Farmington,
Conn. The study explores a possible
mechanism where naturally-occurring
bacteria could trigger an immune
attack in multiple sclerosis (MS).
“This research has opened a door
of possibility," said Robert B. Clark,
M.D., lead study researcher and
associate professor of immunology
in the UConn Health Center’s
department of medicine. "The
National MS Society's commitment
to research is critical to find a cure.”
RESEARCH HIGHLIGHTS
Clark is studying bacteria that may
instigate the T-cell attack against
myelin in MS. Thus far, Clark has
discovered that specific lipids, or
molecules found in fats, produced
by bacteria cause early onset and
symptoms of an MS-like disease
in mice. He is now testing whether
the lipids interact with specific
immune cells, eventually leading to
the myelin-destroying T-cell reaction.
This research could identify a new
mechanism for triggering the onset
and exacerbations of MS and lead
to further studies identifying new
therapeutic approaches based on
regulating these bacterial molecules.
“Research is key to finding a cure for
multiple sclerosis,” said Lisa Gerrol,
president of the Greater Connecticut
Chapter. “This is a positive step
forward to bring the fruit of our
fundraising efforts back to the more
than 6,000 Connecticut residents
who battle the effects of MS.”
For more information on the pilot
research study or the programs
and services offered by the Greater
Connecticut Chapter, please
visit www.ctfightsMS.org, e-mail
[email protected] or
call 860.714.2300.
Vitamin B3 Protects Nerve Tissue from
Further Damage in Mice with MS
R
In this particular study, the team
injected nicotinamide into mice with
EAE, a disease that is like MS. The
nicotinamide treatment succeeded in
reducing inflammation and myelin
destruction, and also protected axons
from loss, including those that had
already lost their myelin sheaths. Also,
neurological symptoms were reduced,
most profoundly in mice given the
highest doses of nicotinamide.
esearchers have reported that
treatment with nicotinamide,
a form of vitamin B3,
prevented damaged nerve fibers
from degenerating further in a mouse
model of multiple sclerosis (MS).
Shinjiro Kaneko, M.D., and
colleagues of the Children's Hospital
in Boston, Mass., reported their
findings in the September 20, 2006,
issue of the Journal of Neuroscience
(2006;26: 9794-9804). This study was
partly funded by a research grant from
the National MS Society to Zhigang
He, Ph.D., and by the National
Institutes of Health.
The immune attack associated with
multiple sclerosis injures myelin, the
insulation that speeds nerve impulse
conduction between nerve cells. The
underlying, wire-like nerve fibers,
or axons, are also damaged. Finding
treatments to protect axons is crucial
because researchers believe that myelin
damage underlies the progression of
disability in MS.
Kaneko and colleagues had previously
shown that the enzyme nicotinamide
04
Further testing is needed before these
findings can be applied to developing
a possible therapy for people with MS.
Researchers reported the nicotinamide
doses used in mice would translate
into much higher doses in humans
than are normally used. These higher
doses would need to be tested
thoroughly for safety, since excessive
intake of several types of vitamins can
have severe side effects.
adenine dinucleotide (NAD) decreases
when axons degenerate in mice.
Injections of NAD or nicotinamide –
a form of vitamin B3 that can be
turned into NAD – prevented injury
to axons.
Toll-Free Number: 1.800.FIGHT MS
For more information on this study
and other research developments,
visit www.nationalmssociety.org.
– Research & Clinical
Programs Department
APRIL / MAY / JUNE
2007
RESEARCHERS FIND MYELIN REPAIR
CAN OCCUR NATURALLY
RESEARCH HIGHLIGHTS
S
multiple sclerosis and some with an
unknown clinical course. Regions
showing lesions were analyzed for
signs of myelin damage and repair
using a variety of microscopic,
staining and labeling techniques.
urrounding and protecting the
nerve fibers of the central
nervous system is a fatty tissue
called myelin, which protects nerve
fibers and allows them to function
properly. When myelin or nerve fibers
are destroyed or damaged, the ability
of the nerves to conduct electrical
impulses to and from the brain is
disrupted, which is thought to produce
the various symptoms of multiple
sclerosis (MS).
A study by an international team of
collaborators, funded in part by the
National Multiple Sclerosis Society,
suggests that a substantial amount
of natural repair can occur to the
myelin coating which is damaged
in individuals with MS. While
previous studies had shown that
natural myelin repair occurs in
individuals with MS, this study
found evidence of myelin repair,
or “remyelination,” in a proportion
of patients’ tissues across most types
and stages of multiple sclerosis.
The study, published in the journal,
Brain, in December 2006, was
conducted by Peter Patrikios and Hans
In 20 percent of patients,
remyelination was extensive in
those with relapsing-remitting and
progressive MS. The investigators
found the amount of remyelination
ranged from sparse to nearly complete
repair. Longer disease duration and
older age at death were associated
with more extensive remyelination.
Lassmann at the Medical University of
Vienna in Vienna, Austria. The study
was financed by the National Institutes
of Health and the European Union,
with additional support from the
National Multiple Sclerosis Society’s
Promise 2010 MS Lesion Project led
by Claudia Lucchinetti, M.D., of the
Mayo Clinic in Rochester, Minn.
The investigators examined autopsied
brain tissues from 51 individuals
with relapsing-remitting, secondaryprogressive and primary-progressive
Further research is required to
determine why some individuals show
evidence of myelin repair while others
do not. The investigators emphasized
that their findings should be factored
into the design of future clinical
trials focusing on myelin repair.
For more information on myelin
repair and other current MS research,
visit www.nationalmssociety.org.
– Research & Clinical
Programs Department
, 2007
Visit our Web site at: www.ctfightsMS.org
05
APRIL / MAY / JUNE
2007
VITAMIN D MAY REDUCE RISK OF MS
RESEARCH HIGHLIGHTS
A
Investigators found the risk of
developing MS decreased with
increased serum levels of 25hydroxyvitamin D, a form of vitamin
D that reflects recent exposure to
sunlight. (Most vitamin D within
the body comes from exposure to
ultraviolet light, rather than from
foods). This apparent protective effect
of vitamin D was found to be
statistically significant only in the
study population who had the highest
levels of vitamin D and were white,
and not in blacks or Hispanics.
recent study, supported in part
by the National Multiple
Sclerosis Society, compared
levels of vitamin D in blood serum
stored from military personnel and
found those with higher levels of
vitamin D were at lower risk for later
developing multiple sclerosis (MS).
The study, conducted by Kassandra
Munger, M.S.C.; Alberto Ascherio,
M.D.; and colleagues from the
Harvard School of Public Health
in Boston, Mass., and other
institutions, was published in the
December 2006, issue of the Journal
of the American Medical Association
(JAMA 2006; 296: 2832-2838).
The investigators focused on 257
individuals who had a minimum
of two blood samples drawn before
they were diagnosed with multiple
sclerosis. The data was stored in a
database of active-duty U.S. military
personnel, which has records for seven
million individuals with at least one
serum sample stored. Their serum
levels of vitamin D were compared
with those of age- and race-matched
06
“The results of this study converge
with a growing body of experimental
evidence supporting the importance
of vitamin D in regulating the immune
system and suppressing autoimmune
reactions, which are thought by most
experts to play a key role in the
development of MS,” said Ascherio,
the lead study author.
controls who did not develop MS. The
average time between the first blood
drawn and the first symptoms of MS
was just slightly more than five years.
Toll-Free Number: 1.800.FIGHT MS
For more information, visit
www.nationalmssociety.org.
– Research & Clinical
Programs Department
APRIL / MAY / JUNE
C O V E R S TO R Y
2007
Shoreline Woman’s Life Is Almost Picture Perfect (continued)
(Continued from page 1.)
Bergen suffers from relapsingremitting MS and she considers
herself lucky in that respect.
Relapsing-remitting MS is defined
by flare-ups, also called relapses,
attacks, or exacerbations that are
followed by partial or complete
recovery periods (remissions) free of
disease progression. She has retained
her ability to read with the aid of
eyeglasses, and, although her muscles
are stiff as a result of the effects of
MS, she is still able to walk after
more than 15 years with the disease.
Soon after her diagnosis, Bergen
contacted the National Multiple
Sclerosis Society, Greater Connecticut
Chapter. As she learned more about
the organization, its mission and goals,
she felt compelled to join in the fight.
In 1991, just a year after she was
diagnosed, she participated in her first
MS Walk event in West Haven, Conn.
Since that time, Bergen has stepped
out every year; sometimes walking
alone, with friends, or with her two
dogs, but nevertheless walking.
“Although I can’t go as far or as
fast as some of the other walkers,
I recognize the importance of
participating while I can,” explained
Bergen. “It’s still hard to ask for
contributions, but it has become easier
after realizing it’s not about me, but
about the larger mission to find a cure.
Every step and every dollar brings us
closer to finding a cure. I have to
thank my colleagues, friends, and
family for their generosity to this
cause over the years.”
Bergen has never been one to quit or
give up without a fight, a quality that
she has always attributed in part to
her faith. Prior to her career as an
administrator in higher education,
Bergen was a member of the
community of the Sisters of Notre
Dame de Namur in New York. Always
accustomed to caring for others, she is
still learning to relinquish the role and
allow people in turn to care for her.
“Every day offers something new and
different,” said Bergen. “Tomorrow I
could wake up
and not be able
to walk. You just
don’t know
what’s around
the corner so
you live each
day to the fullest
– taking
advantage of
every minute.”
After turning
55, Bergen
retired from
her position
as a director
Marilyn
of academic
with their
advising for
Gateway Community College in
New Haven where she had worked
for nearly 20 years. She is currently
focusing on living one day at a time;
grateful for each day she has knowing
of the uncertainties of tomorrow. And
with her free time, Bergen is preparing
to lace up, along with more than
7,000 other Connecticut residents,
for the 2007 Travelers MS Walk.
One of the most important things
Bergen has learned since her
diagnosis has been
to recognize
that, contrary to
peoples’ desires
and expectations,
art most likely can
never truly reflect
life, and, although
it may come
close, life most
likely will never
imitate art.
Bergen and Peggy Arthur
two dogs, Tetley and Cozie.
Group and hosted by the Greater
Connecticut Chapter, will be held
Sunday, April 22, at eight sites
across Connecticut and at a ninth,
Woodstock, on Sunday, April 29.
The event takes place rain or shine.
To learn more about the 2007
Travelers MS Walk tune to WTNH
News Channel 8, My TV 9,
96.5 TIC and 97.7 WCTY, or
visit www.ctfightsMS.org or
call 860.714.2300.
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“Living isn’t
about being perfect
or doing things
perfectly, but rather
about living your
days to the fullest
(and) ‘carpe
diem’!” Bergen
summed up.
The 2007 Travelers
MS Walk,
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07
APRIL / MAY / JUNE
2007
MS WALK
THANK YOU TO ALL OUR SPONSORS!
TITLE SPONSOR
PRESENTING SPONSOR
PLATINUM SPONSORS
DIAMOND SPONSORS
Pure Protein · Sprint Nextel · Wolf Popper, LLP
GOLD SPONSORS
American Honda · Assa Abloy, Inc.
Gaffney, Bennett & Associates · Mount Sinai Rehabilitation Hospital
Novartis Pharmaceutical Co. · Serono · The Okonite Company
USA Hauling & Recycling, Inc.
SILVER SPONSORS
Alliance Energy · Berlex Laboratories · Center for Orthopedics, P.C.
Hartford Hospital · Lydall, Inc. · OFS · The Naugatuck Savings Bank Foundation
Pepe & Hazard LLP · PricewaterhouseCoopers, LLC · Pfizer, Inc. · TEVA Neuroscience
BRONZE SPONSORS
Blum, Shapiro & Co., P.C. · Carpenters Union · Connecticut Bankers Association
CT Rehab/www.ctrehab.com · General Thoracic Surgeons of CT, P.C.
Haggett Longobardi, LLC · Konica Minolta Business Solutions U.S.A., Inc.
Kostin, Ruffkess & Co., LLC · Richard Chevrolet, Inc.
MEDIA PARTNERS
ADDITIONAL SUPPORTERS
08
Toll-Free Number: 1.800.FIGHT MS
ASK THE PROFESSIONAL
ASK THE PROFESSIONAL
APRIL / MAY / JUNE
2007
N
aomi Driesen, Ph.D., is an associate research scientist providing neuropsychological assessment to individuals with
multiple sclerosis (MS) at the Yale MS Center in New Haven, Conn. The Greater Connecticut Chapter has given a
grant which has helped make the Yale MS Center possible. Driesen is a native of Connecticut and earned her
Bachelor of Arts degree in religious studies from Yale University in New Haven, Conn. She went on to earn a Master of
Arts degree in clinical psychology from the University of Virginia in Charlottesville, Va., and earned a Doctorate in
clinical psychology with a minor in neuropsychology from the University of Memphis in Memphis, Tenn.
How does your work tie in with
individuals with MS?
helps preserve memory, attention and/or
cognitive control in a person with MS.
The Yale MS Center offers
neuropsychological assessment to
individuals who normally could not
afford this service. The assessment
helps individuals better understand
and adapt to neurocognitive problems,
help determine whether their disease is
progressing and find out how multiple
sclerosis affects everyday function.
I also make recommendations to
patients and clinicians to help patients
improve their quality of life.
Are there any groundbreaking advances
on the horizon of which you are aware?
What kind of research do you conduct
in regard to patients with MS?
I use brain imaging and
neuropsychological assessment to
evaluate the effects of medications
and other types of intervention. For
example, I can use magnetic resonance
imaging in patients with MS to see
if brain volume decreases as a result
of MS or if a particular medication
preserves brain tissue. Similarly, I can
assess whether a particular medication
Multiple sclerosis is a quickly
developing field and we are learning
about MS and treatments almost every
day. With this amount of effort in MS
research, I am optimistic that we will
soon find more effective treatment
options, if not a cure, for multiple
sclerosis. Also, looking at the pipeline
of new MS medications being tested, I
think it is likely there will be an oral
medication for multiple sclerosis.
How has the quality of life for people
with MS, as it relates to the field of
psychiatry, changed since you began
your work?
My grandmother had multiple sclerosis
when there were no treatments
available, and she was often blamed
for her symptoms. Today, there are
treatments that slow the progress of
MS, and healthcare professionals have
a greater understanding of how
multiple sclerosis impacts individuals
physically, cognitively and emotionally.
What can individuals with MS do to
treat and/or prevent symptoms as they
relate to psychiatry?
Symptoms are related to both the brain
and to emotions, which oftentimes
interact. For example, a patient may
become seriously depressed over new
symptoms and the depression may
further worsen his or her functioning.
There are many helpful interventions,
such as support groups, taking antidepressant medications or talking with
a professional. It helps for patients with
multiple sclerosis to work closely with
their health professionals to identify
problems and the best solutions.
The Yale MS Center will be
conducting a study which involves
neurocognitive testing to determine
if a new medication can help those
with cognitive difficulties due to MS.
For more information, contact Sarah
Henry, M.P.H., at 203.764.8160.
Paid Advertisement
Visit our Web site at: www.ctfightsMS.org
09
APRIL / MAY / JUNE
2007
CHAPTER NEWS
AWARD
NOMINATIONS
The nomination deadline
dates for Chapter Board,
Employer of the Year and
Achievement Awards will be
available soon. For the most
up-to-date information, visit
www.nationalmssociety.org.
10
Sunday, June 3, 2007
Tour features routes in two- to 100-mile increments located in
and around Windsor, Connecticut. For more information or to
register, call 1.860.714.BIKE or visit www.ctfightsMS.org.
Toll-Free Number: 1.800.FIGHT MS
MS AMBASSADORS
SPEAK TO BE HEARD!
CHAPTER NEWS
O
ur MS Ambassadors are adults
age 18 and older and MS Junior
Ambassadors are children under
18 who are either diagnosed with MS
or are a family member of an individual
with MS. All MS Ambassadors play
an important role in the fight against
multiple sclerosis by helping to generate
awareness in the community about MS.
Working closely with chapter staff and
volunteers, MS Ambassadors speak to
media and civic organizations about MS
and their personal experiences with this
disease. These opportunities include
radio, television or newspaper
interviews and speaking at Greater
Connecticut Chapter events.
APRIL / MAY / JUNE
2007
If you are interested in serving as
an MS Ambassador or MS Junior
Ambassador, or want to learn more
about the MS Ambassador program,
please contact Melissa Saranitzky,
Communications Coordinator, at
860.714.2300, ext. 239 or e-mail
[email protected].
Bikers to Unite Tires to Pavement &
Hearts to Worthy Cause
T
By Karen E. Butler, Vice President of Communications
he National Multiple Sclerosis
Society, Greater Connecticut
Chapter is revvin’ up to host the
7th annual MS Motorcycle Ride to be
held on Sunday, July 22. Last year,
more than 1,200 riders donned leather
for this increasingly popular event
uniting tires to pavement and hearts
to a cause. The 2007 ride will kick
start from TSI Harley-Davidson/Buell
in Ellington, Conn., at 11 a.m.
“Finding a cure for MS is a priority
for me,” said Sean Booska, who is a
top fundraiser for the event and whose
uncle, also a one-time bike enthusiast,
passed away last year as a result of
complications related to multiple
sclerosis. “Riding is also a passion of
mine. Saddling up for a cause that can
raise funds to help find a cure makes
riding all the more meaningful.”
The ride traverses a 40-mile route
through Connecticut’s breathtaking
countryside, coming to rest at Hebron
Lions Fairgrounds in Hebron, Conn.,
where participants are treated to a down
home barbeque, live entertainment,
games and drawings.
Rex “Nervous
Rex” Emrick,
The Rock
106.9
WCCC, will
emcee the
after-ride
festivities.
“Teaming
up with
community
non-profit
organizations,
such as the
Greater
Connecticut
Chapter,
brings the
cause home
and localizes
the fight,”
said Emrick,
Visit our Web site at: www.ctfightsMS.org
who is a graduate of Connecticut
School of Broadcasting. “The Rock is
pleased to team up to support those
battling the effects of MS.”
Multiple sclerosis is a potentially
debilitating autoimmune disease
affecting the central nervous system.
The cause is unknown and there
currently is no cure. Funds raised
through chapter events, such as the
MS Motorcycle Ride, ensure ongoing
scientific research to find a cure and
the continuation of vital programs
and services offered by the chapter
to more than 6,000 Connecticut
residents diagnosed with MS.
Pre-registration is available online at
www.ctfightsMS.org. Pre-registration
will also be available at TSI Harley
Davidson/Buell, located at 398 Somers
Road in Ellington, Conn., on Saturday,
July 21, from 9 a.m. to 3 p.m. There is
a $20 fee for riders and a $20 fee for
passengers. The event is open to
spectators and visitors with a $10
donation for finish line festivities only.
Sponsors include TSI Harley-Davidson/
Buell in Ellington, WFSB-TV
Eyewitness News Channel 3,
The Rock 106.9 WCCC and
Connecticut Cruise News.
For more details on the 2007 MS
Motorcycle Ride, please visit
www.ctfightsMS.org or call
860.714.2300, ext. 234.
11
APRIL / MAY / JUNE
2007
CHAPTER NEWS
GREATER CONNECTICUT CHAPTER
RELOCATES TO HARTFORD
T
he National Multiple Sclerosis
Society, Greater Connecticut
Chapter, formerly located in
Newington, relocated in January to
the North Campus of Saint Francis
Hospital and Medical Center in
Hartford, Conn., also the location of
Mount Sinai Rehabilitation Hospital.
“The Greater Connecticut Chapter
has experienced incredible growth
over the past five years,” said
Karen Butler, Vice President of
Communications. “However, with
expansion and growth come spacerelated issues. Our new location
provides the facilities needed to better
serve those depending on us most.”
The chapter’s new address is as follows:
National Multiple Sclerosis Society
Greater Connecticut Chapter
659 Tower Avenue, First Floor
Hartford, CT 06112-1269
The chapter’s new phone number is
860.714.2300. Faxes can be sent to
860.714.2301. Inquiries regarding the
move and new contact information
should be sent to Karen E. Butler
at [email protected].
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12
Toll-Free Number: 1.800.FIGHT MS
Q&A
CLIENT
M
Q&A
APRIL / MAY / JUNE
2007
onique Hebert, 41, an Enfield, Conn., native, was diagnosed with multiple sclerosis (MS) 13 years ago.
Hebert has served as a volunteer for the Greater Connecticut Chapter for more than nine years and is involved
with the 2007 Travelers MS Walk site in Enfield, Conn. She currently resides in Enfield with husband Mark
and daughter Nicole.
How did you become involved with
the Greater Connecticut Chapter?
After a significant exacerbation, my
doctor told me that I couldn’t work
anymore, which was really difficult to
accept. That’s when I discovered the
Greater Connecticut Chapter, where
I found resources and support groups
that really helped. I also became
involved with the MS Walk event,
have helped to schedule a disc jockey
at the Enfield walk site and have
raised funds for six Hope Markers.
How has your battle with MS affected
your outlook on life?
The Hebert Family (l to r): Nicole, Mark, and Monique
When did you first have symptoms
of MS?
experience, I thought I was going to
end up in a wheelchair.
My symptoms began at 25 after I had
my daughter. Most of my friends, who
were also new mothers, were up and
about after a few weeks, yet I wasn’t
feeling well after eight weeks. I was
extremely fatigued and I experienced
numbness and severe headaches.
I continued to work every day as
director in the Annuities division of
the Hartford Life Insurance Company
in Simsbury, Conn., despite the
recurrent numbness in my legs and
hands. I also experienced bladder and
bowel problems. I would return home
each night completely exhausted. I felt
as if my life revolved around being
able to go to work the next day.
I went to several doctors to find a
reason for my symptoms. At the time,
my health insurance wouldn’t approve
an MRI, and I was told I had Lyme
disease. Finally, after two years,
I had a spinal tap and an MRI, and
that’s when I received my diagnosis
of multiple sclerosis.
How did you feel when you were
first diagnosed?
At first, I was angry and in denial
because I never knew much about
multiple sclerosis. A close family
friend had MS, and based on her
I try to do everything, and I have
come to realize that I can’t. Although
it’s sometimes difficult for me to rely
on others, my family is always here
to help with chores and cooking.
Also, some days I am sad and other
days I am ready to take on the world.
My family never knows how I will
feel from day to day.
Despite the daily struggles, I try
to see the positives. I can see my
daughter each day when she gets
home from school, and if I was
working I wouldn’t be able to be
home. I have faith and I believe
that everything happens for a reason.
My reason for having MS was to
slow me down from my busy life
and to take time and smell the roses.
Q&A
In each issue we feature a person with multiple sclerosis
or a caregiver. This column allows you to share your
inspirational stories with others who may be experiencing similar
circumstances. If you would like to be featured in Q&A, or if you
know someone who would be a good candidate, please contact
Melissa Saranitzky, Editor in Chief, a t 8 6 0 . 7 1 4 . 2 3 0 0 , e x t . 2 3 9 , o r
e-mail [email protected].
Information provided in response to questions does not represent therapeutic
recommendations or prescriptions. The National MS Society recommends
that all questions and information be discussed with a personal physician.
Visit our Web site at: www.ctfightsMS.org
13
APRIL / MAY / JUNE
2007
b k m / S T E E LC A S E M S B I K E TO U R
GET READY TO RIDE IN
THE 2007 bkm/STEELCASE
MS BIKE TOUR
G
et ready to start the summer
cycling season with the 26th
annual bkm/Steelcase MS Bike
Ride on Sunday, June 3.
bkm/Steelcase MS
Bike Tour Sponsors
TITLE SPONSOR
GOLD SPONSORS
Executive Logistics / nerac.com
SILVER SPONSORS
Participants can choose from 2-, 10-,
25-, 50- or 100-mile route options.
The finish line features massage
therapists, a delicious buffet, live
music and plenty of family fun!
Atlantic Plywood
Liberty Mutual
May, Bonee & Walsh
Murtha Cullina, LLP
Pre-registration is $35 and the
registration fee on event day will
be $45. There is a $125 fundraising
minimum per rider. The tour will
take place rain or shine and volunteers
are needed for set-up, rest stop duties
and clean-up.
BRONZE SPONSORS
TEVA Neuroscience
Tulimieri & Associates
BIKE SHOPS –
PLATINUM
For more information, contact Amanda
Barry, Development Coordinator, at
860.714.2300, ext. 227 or via e-mail
at [email protected].
Ski Market, Manchester
BIKE SHOPS – GOLD
Ski Market
Underground, Avon
BIKE SHOPS – SILVER
Alternative Spoke, LLC
BIKE SHOPS – BRONZE
MEDIA SPONSORS
SPECIAL THANKS
Sunday, June 3, 2007
14
Toll-Free Number: 1.800.FIGHT MS
APRIL / MAY / JUNE
GREATER CONNECTICUT CHAPTER
MOVES TO NEW NEIGHBORHOOD
ON WORLDWIDE WEB
CHAPTER NEWS
T
he National MS Society,
Greater Connecticut Chapter,
having recently relocated from
Newington to Hartford, is announcing
its move to a new neighborhood
within the World Wide Web (www)
to include new e-mail addresses.
Formerly located at www.ctnmss.org,
the chapter site can now be found at
a new, easy-to-remember domain:
www.ctfightsMS.org. For the moment,
guests and visitors can still find and
e-mail the chapter at its former
ctnmss.org domain.
“The National MS Society is
experiencing many changes – exciting
changes – this year,” said Barbara
Davis, who manages the chapter’s
information systems. “Our new domain
name is just one more positive change,
making it easier for visitors to
recognize and remember. Those just
diagnosed with MS and those who
have battled it for years depend on
us for the most up-to-date research
2007
information available. Today’s culture
looks to the Web as a definitive
source of solid information. We want
to make it as easy as possible for
people, already facing tremendous
residents diagnosed with multiple
sclerosis and their families across
Connecticut, including Hartford,
Tolland, Windham, New London,
Middlesex and New Haven counties.
challenges, to find us as quickly
as possible.” More than 6,000
Connecticut residents battle the
effects of multiple sclerosis (MS).
The chapter also raises funds to
ensure ongoing scientific research to
find a cure. The Greater Connecticut
Chapter has raised $3 million or
more for the past four consecutive
years. Over the past few years, the
chapter has provided tens of thousands
of dollars in grants to support
continuing Connecticut-based scientific
research and specialized clinical care.
www.ctfightsMS.org
Multiple sclerosis is a potentially
debilitating disease affecting the central
nervous system. Symptoms can include
among other things numbness in the
extremities, difficulties with vision and
speech, stiffness and, in some more
severe cases, total paralysis. There
currently is no cure for multiple
sclerosis. The Greater Connecticut
Chapter offers vital programs and
services to those in Connecticut
affected by MS. The chapter serves
For more information on the chapter’s
new domain address, the programs or
services it offers or the organization’s
many other efforts to fight MS, please
visit www.ctfightsMS.org or e-mail
[email protected].
Paid Advertisement
Visit our Web site at: www.ctfightsMS.org
15
APRIL / MAY / JUNE
2007
SYMPTOM MANAGEMENT:
COGNITIVE FUNCTION
S Y M P TO M M A N A G E M E N T
A
pproximately 50 percent of
individuals with multiple
sclerosis (MS) will develop
cognitive dysfunction, affecting the
ability to think, reason, concentrate
and remember. While cognitive
dysfunction is more common among
individuals who have had the disease
for a period of time, it can be seen
as early as the first symptom of MS.
Multiple sclerosis may affect cognitive
function for several reasons, as the
disease damages both myelin and
nerve cells within the brain. MRI
studies have indicated that the severity
of cognitive dysfunction is related
to the extent of demyelination in
the brain. Also, individuals with
multiple sclerosis oftentimes
experience depression, anxiety, stress,
and fatigue, all of which may
compromise cognitive functioning.
Cognitive dysfunction varies
considerably from person to person,
just as the physical symptoms of
multiple sclerosis also vary. The
most commonly affected cognitive
function is memory, along with
speed of information processing,
planning and prioritizing, impairment
in visual perception and constructional
abilities, abstract reasoning and
problem-solving, attention and
concentration. Another common
cognitive dysfunction is word-finding
difficulty, similar to having a word
“on the tip of your tongue” but
not being able to remember it.
The first signs of cognitive dysfunction
can be subtle. An individual may have
difficulty in finding the right words
to say, or trouble remembering what
to do at work or home. Oftentimes,
family members are the first to
notice changes in behavioral or
personal habits.
Individuals with MS and their families
should seek medical advice if they are
concerned about cognitive dysfunction.
Even soon after diagnosis, cognitive
dysfunction can impact performance
at home and work. In fact, research
Paid Advertisement
has shown that cognitive symptoms
and fatigue are two primary reasons
for early resignation from the
workforce. Since cognitive function
can also be affected by aging or
medications, a careful evaluation
is necessary to determine the cause.
For more information about MS
and cognitive function, visit
www.nationalmssociety.org.
– Research & Clinical
Programs Department
Paid Advertisement
We provide a full line of Durable Medical
Equipment including:
•Manual Wheelchairs
•Power Wheelchair
•Scooters
•Lift Chairs & Hospital Beds
We accept assignment on Medicare and
other Insurance providers
800-411-1388
www.Maximmobility.com
16
Toll-Free Number: 1.800.FIGHT MS
“Maxim helped me when nobody
else would.” -L.H. Hartford, CT
MAROHN PROMOTED TO
ASSOCIATE VICE PRESIDENT
CHAPTER NEWS
O
APRIL / MAY / JUNE
2007
n Tuesday, Feb. 13, the
Greater Connecticut Chapter
announced the promotion of
Nicole Tobin Marohn, formerly
Director of Development, to Associate
Vice President of Development.
Marketing Strategies (IMS) in
Stamford, Conn., from 1999 to 2001.
From 1997 to 1999, she was affiliated
with WPLJ-FM in New York, N.Y.
and with Blair Television, also in
New York, N.Y., from 1996 to 1997.
“During the past four years, Ms.
Marohn has played a significant role
in the continued growth and success
of our chapter,” said Lisa Gerrol,
President. “Her promotion is
recognition of her strong leadership
and outstanding work in overseeing
fundraising events that have increased
our ability to fund scientific research
and enhance programs and services
in our community for those battling
multiple sclerosis.”
“This promotion will enable the
society and I to continue our efforts
to end the devastating effects of
multiple sclerosis,” said Marohn,
who resides in Middletown, Conn.
“I look forward to the day a cure is
found and I can say our job is done.”
A native of Madison, Conn., Marohn
received her Bachelor of Arts degree in
communications from the Muhlenberg
College, located in Allentown, Pa., in
1996. Marohn joined the National MS
Marohn oversees the Greater
Connecticut Chapter Development
Department, which coordinates the
chapter’s $1 million walk event,
two bike tours, motorcycle ride,
golf classic, and comedy night.
To learn more about participating
in chapter events, please visit
www.ctfightsMS.org or call Nicole
Marohn at 860.714.2300, ext. 244.
Society, Greater Connecticut Chapter
in 2003. Previously, she was affiliated
with the Wethersfield-based Cystic
Fibrosis Foundation serving as
Director of Special Events from 2001
to 2003. Marohn served as Director
of Special Events with International
KNOWLEDGE IS POWER
KIP is now available online!
An at-home educational program about MS –
You can now receive KIP through your e-mail. KIP
is an at-home educational program about multiple
sclerosis for people who are newly diagnosed, or for
family members and friends interested in exploring
the issues that challenge many people with MS.
Once you register for this free program, you will
receive a new article every week for 6 weeks. The
articles, written by experts who serve as consultants
and advisors to the National MS Society, are
designed to provide a convenient way to learn more
about MS. Knowledge is Power is also available in
Spanish. Topics include:
• Taking the First Steps: What is MS, Dealing
with Your Diagnosis and Disclosure
• Disease Modifying Treatments for MS
• Maximizing Your Employment Options
• Treating Yourself Well
• Maintaining Healthy Relationships: Family
Friends and Colleagues
• Working with Your Doctor
Two additional volumes, Building and Maintaining
Intimate Relationships and Parenting with MS are
available for those interested in these topics.
To register, complete the form below
and return it to the chapter office.
Knowledge Is Power — Registration Form
NAME:
ADDRESS:
CITY/STATE/ZIP:
HOME PHONE: (
EMAIL:
)
I WOULD LIKE TO RECEIVE KIP THROUGH:
EMAIL
PLEASE CHECK ONE:
DATE OF BIRTH:
REGULAR MAIL
English
Spanish
DATE OF DIAGNOSIS:
Mail to:
National Multiple Sclerosis Society
Greater Connecticut Chapter
659 Tower Ave., First Floor
Hartford, CT 06112-1269
Fax to: 860.714.2301 • E-mail: [email protected]
Visit our Web site at: www.ctfightsMS.org
17
APRIL / MAY / JUNE
2007
CHAPTER NEWS
What’s New in the
Raymond P. Howell Library?
BOOK:
EVEN THE RIFFLE CAN BE EXCITING. A story of the Colorado River
and those who have attempted to journey through the Grand Canyon by
whitewater rafting, some with limited mobility. 83 pages. Written by
Thomas F. Elliott and published by Trafford Publishing, 2006.
CD:
HEALING YOGA FOR EVERY BODY WITH KAREN O’DONNELL
CLARKE. Gentle movements of breath, mind and body for deep
relaxation and healing. Produced by Karen O’Donnell Clarke, 2006.
VIDEOTAPE:
YES, YOU CAN YOGA! Yoga for individuals with MS, presented by the
MS Awareness Foundation. Features Karen O’Donnell Clarke. Produced
2003. Running time 37 minutes.
CLASSIFIEDS
FOR SALE
1999 Ford Windstar Van,
58,000 miles, excellent cond.
A/C, hand controls, rear
wheelchair lift. Also Jazzy
electric wheelchair. Both for
$10,000, neg. Contact Peter
at [email protected] or
860.844.8389.
To submit an ad, contact Melissa Saranitzky at 860.714.2300, ext. 239
or e-mail [email protected].
FOR SALE
1994 Ford van, fully
handicap accessible w/Crow
River Lift, hand controls,
lowered floor, power
doors, dual batteries. Wellmaintained and under 100K
miles, asking $9,500. Call
Carol at 860.633.1679.
FOR SALE
Pronto M71 power wheelchair with Sure Step.
Brand new 2005 model, measures 38”- 40” long,
width with joystick is 26”, height 37” and
adjustable. Seat width: 18”- 20” and depth is
16”- 20”. Weight: 200 lbs. with batteries, 3 AMP
built-in battery charger, can be disassembled.
Asking $3,000. Contact Alec at 860.646.7519
or 860.930.8152.
Paid Advertisement
18
Toll-Free Number: 1.800.FIGHT MS
APRIL / MAY / JUNE
S U P P O RT G RO U P S
SUPPORT GROUPS
2007
Please verify group meetings with leaders as dates and times are subject to change. The contact information
provided should not be used for solicitation purposes. Additional support can be located online at www.msworld.org.
BRANFORD
The Branford MS Support Group meets on
the first Wednesday of each month at 5:30
p.m. at the James Blackstone Memorial
Library located at 758 Main St. in
Branford. For information, contact Maura
Jean at 203.214.9615.
located at 220 Coe Ave. in Meriden, Conn.
Use Oregon Rd. entrance. The group
meets at 6:30 p.m., on the third
Wednesday of the month from June to
August at the Meriden Public Library,
located at 105 Miller St. For information,
contact Allison at 203.230.8672.
BLOOMFIELD
The Bloomfield MS Support Group meets
at 10:30 a.m. on the fourth Thursday of
each month at the Bloomfield Senior
Center located at 330 Park Ave., in
Bloomfield. For information, contact
Lenny at 860.242.8354.
MIDDLETOWN
The Middletown MS Support Group
meets at 1 p.m. on the second Saturday
of each month at Wadsworth Glen
located at 30 Boston Road in Middletown.
For information, contact Howard at
860.344.0888 or Mary at 860.828.5240.
COLCHESTER
The Colchester MS Support Group meets
from 10:30 a.m. to noon on the second
Saturday of each month at Harrington
Court located at 59 Harrington Court in
Colchester. For information, contact Ed at
860.537.1919 or Peggie at 860.267.9759.
MILFORD
The Milford MS Support Group meets
at 1:30 p.m. on the second and fourth
Saturday of each month at Milford
Hospital located at 300 Seaside Ave.
in Milford. For information, contact Joy
at 203.378.0936, John at 203.874.1225
or Lois at 203.878.6222.
DERBY
The Derby MS Support Group meets
at 3:30 p.m. on the fourth Thursday of
each month at Griffin Hospital, Dining
Room 2, located at 130 Divison St., in
Derby. For information, contact Anastasia
at 203.732.7181.
EAST GRANBY – ONLINE
The East Granby MS Support Group
meets online from 6:30 to 7:30 p.m.
every Wednesday. For information,
contact Wendy at 860.738.1139 or
Jeannie at 860.668.2792.
GRANBY
The Granby MS Support Group meets
at 1 p.m. on the second and fourth
Monday of each month at Salmon Brook
Apartments located at 287 Salmon Brook
Street in Granby. For information, contact
Jane at 860.653.2436.
MADISON
The Madison MS Support Group meets
from 11:45 a.m. to 1 p.m. on the third
Wednesday of each month at the Memorial
Town Hall located at 8 Meetinghouse
Lane in Madison. For more information,
contact Karen at 203.245.4691.
MANCHESTER
The Manchester MS Support Group meets
at 10 a.m. on the first Monday of each
month at the Presbyterian Church of
Manchester located at 394 Lydall St.
in Manchester. For information, contact
Nancy at 860.742.5155, Karen at
860.875.9730 or Sharon at 860.647.0429.
MERIDEN
The Meriden MS Support Group meets
at 6:30 p.m., on the third Wednesday
of the month in May at Platt High School,
NEW LONDON
The New London MS Support Group
meets at 6:30 p.m. on the fourth
Wednesday of each month at Lawrence &
Memorial Hospital located at 365 Montauk
Ave., in New London. For information,
contact Pat Orce at 860.442.0711, ext 2105.
NEWINGTON
The Newington MS Support Group meets
at 7:00 p.m. on the second Thursday
of the month, and at 1:30 p.m. on the
fourth Thursday of each month at the
Newington Senior and Disabled Center
located at 120 Cedar St. in Newington.
For information, contact Charlie at
860.667.1314 or Mary at 860.666.0414.
NORWICH
The Norwich "New Life with MS"
professionally facilitated support group
meets from 6 to 7:30 p.m. the last
Thursday of each month. For location
and information, contact Beth Avery
at 860.572.0667 or Liz MacAdie at
860.886.5194.
OLD SAYBROOK
The Old Saybrook MS Support Group
meets at 10:30 a.m. on the third
Wednesday of each month at St. Paul
Church located at 56 Hammock Road
in Old Saybrook. For information,
contact Bruce at 860.767.2039 or June
at 860.399.8296.
PLAINVILLE
The Plainville MS Support Group meets
from 7 to 9 p.m. on the third Monday of
each month at Northwest Village School,
Wheeler Clinic, located at 91 Northwest
Drive in Plainville. For information,
contact George at 860.793.9589.
Visit our Web site at: www.ctfightsMS.org
PUTNAM
The Putnam MS Support Group meets at
7 p.m. on the third Friday of each month
at Day Kimball Hospital located at
320 Pomfret St. in Putnam. For
information, contact Pat at 860.779.0398.
ROCKY HILL
The Rocky Hill Support Group meets
from 1 to 3 p.m. on the third Thursday
of each month at Cora Belden Library
located at 33 Church St. in Rocky Hill.
For information, contact Celeste at
860.632.8730 or Carin at 860.379.6745.
SOUTHINGTON
The Southington MS Support Group meets
at 7 p.m. on the second Monday of each
month at Bradley Memorial Hospital
located at 81 Meriden Ave. in Southington.
For information, contact Jennifer at
860.426.0010 or Lynn at 860.589.2247.
STORRS
The Storrs MS Support Group meets at
6 p.m. on the second Thursday of each
month at the University of Connecticut
Britta Nayden Rehabilitation Clinic
located on Dog Lane in Storrs. For
information, contact Susan at 860.423.7413
or Cristina at 860.486.8618.
VERNON
The Vernon MS Support Group meets at
7 p.m. on the first Friday of each month
in the Community Room at the Vernon
Police Department located at 725 Hartford
Turnpike in Vernon. For information,
contact Nancy at 860.742.5155 or Marty
at 860.749.7108.
WATERBURY
The Waterbury MS Support Group meets
at 5:30 p.m. on the third Wednesday of
each month at Mattatuck Museum,
Performing Arts Center on the third floor,
located at 144 West Main Street
in Waterbury. For information, call
Jacqueline Johnson at 203.753.2708.
WEST HAVEN
The West Haven MS Support Group meets
at noon every Thursday at the West Haven
Veterans Administration Hospital, Building
2 on the second floor in West Haven. This
support group is open to veterans only.
For information, contact Mary Lou at
203.932.5711, ext. 2276.
OTHER
SUPPORT
Infoline 24-hour
counseling
Dial “211”
Samaritans
24-hour support
860.232.2121
19
APRIL / MAY / JUNE
2007
Thursday, April 19
Sunday, April 22
Friday, April 27
Sunday, April 29
Saturday, May 12
Monday, May 14
Friday, June 1
Sunday, June 3
C A L E N DA R O F E V E N T S
MS Corporate Achievers New Haven - New Haven, Conn.
Travelers MS Walk, presented by UnitedHealth Group
Cheshire, Clinton, Enfield, Manchester, New London,
Simsbury, West Hartford and West Haven, Conn.
MS Research Night featuring Timothy Vollmer, M.D.
Four Points Sheraton, Meriden, Conn. - 6:30 p.m.
Travelers MS Walk, presented by UnitedHealth Group
Woodstock, Conn.
Ringling Brothers, Barnum & Bailey Circus
Hartford Civic Center, Hartford, Conn.
MS Corporate Achievers Hartford - Hartford, Conn.
Women Against MS (WAMS) Luncheon - New Haven, Conn.
bkm/Steelcase MS Bike Tour
Griffin Center, Building 5 - Windsor, Conn.
Tuesday, June 5
Exercise and MS
Newly Diagnosed Monthly Teleconference Series
Sunday, June 10
Family Fun with the Connecticut Sun
Mohegan Sun, Uncasville, Conn.
June 17 - 22
Thursday, June 28
Sat/Sun, July 7 - 8
Tuesday, July 10
Sunday, July 22
MS Vacation Week - Camp Hemlocks, Hebron, Conn.
Greater Connecticut Chapter Open House
659 Tower Ave., First Floor, Hartford, Conn. - 4-7 p.m.
MS Family Weekend - Windsor Marriott, Windsor, Conn.
Open Discussion Group
Newly Diagnosed Monthly Teleconference Series
The National Multiple Sclerosis Society,
Greater Connecticut Chapter is proud to be a
source of information on multiple sclerosis.
Our comments are based on professional
advice, published experience and expert
opinion. Information provided in response to
questions does not represent therapeutic
recommendations or prescriptions. The
National MS Society recommends that all
questions and information b e d i s c u s s e d
with a personal physician.
The National Multiple Sclerosis Society,
Greater Connecticut Chapter does not
endorse products, services or manufacturers.
Such names appear in t h i s p u b l i c a t i o n
s o l e l y b e c a u s e t h ey a r e considered
valuable information. The chapter assumes
no liability whatsoever for the contents or
use of any product or service mentioned.
The publisher reserves the right to refuse
advertising deemed inappropriate to the
philosophy of the National Multiple
Sclerosis Society.
©2007 National Multiple Sclerosis Society,
Greater Connecticut Chapter
MS Motorcycle Ride - TSI Harley-Davidson/Buell, Ellington, Conn.
Saturday, August 4
Moving Forward: A Program for People Newly Diagnosed
659 Tower Ave., Hartford, Conn.
Tuesday, August 7
Memory, Moods & Medications
Newly Diagnosed Monthly Teleconference Series
For information about programs and events presented by the Greater Connecticut
Chapter, please call 860.714.2300 or visit www.ctfightsMS.org.
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