“I got tired of being called a sissy”
Transcription
“I got tired of being called a sissy”
“I got tired of being called a sissy” focus group findings on tobacco use in lgbt communities Affirmations 290 West Nine Mile Road Ferndale, Michigan | 48220 Phone: (248) 398-7105 www.GoAffirmations.org Acknowledgements Through support from Michigan Department of Community Health, this report was developed by staff and interns at Affirmations. Hilary Armstrong analyzed the focus group data and wrote this report. Stephanie Soliz and Ryan Stabler assisted with participant recruitment and focus group implementation. Thank you to Kalamazoo Gay and Lesbian Resource Center for their assistance with focus group guide development, participant recruitment and implementation of focus groups on the west side of Michigan. Thank you to The Center for Sexuality & Health Disparities at the University of Michigan School of Pubilic Health for graciously sharing their expertise of qualitative research with Affirmations staff and interns. About Affirmations Affirmations is Michigan’s largest community center for lesbian, gay, bisexual & transgender (LGBT) people and their allies. Affirmations opened in 1989 and is housed in a state-of-the-art, multi-use-facility in the heart of downtown Ferndale, at the Northern border of the City of Detroit. Affirmations provides a welcoming space where people of all sexual orientations, gender identities & expressions, and cultures can find support and unconditional acceptance, and where they can learn, grow, socialize and have fun. For more information, visit our website: www.GoAffirmations. org. Affirmations’ Health & Wellness program area addressess LGBT health disparities through professional training and development for healthcare providers, LGBT-affirming mental health services, community education, coalition building, and connecting LGBT people to health resources. These efforts advance health equity by shining light on the health impacts of stigma, discrimination and societal inequalities while leveraging community strengths and celebrating resiliency. For more information about this report or other Affirmations projects, please contact: Lydia Ahlum Hanson, MSW, MPH Health & Wellness Manager Direct Line: 248-677-7223 Email: [email protected] Table of Contents Background. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .4 Purpose of Study. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 Methods. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 Analytic Strategy. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 Summary of Findings . . . . . . . . . . . . . . . . . . . . . . . . . 6 I. Tobacco Use II. Quit Attempts III. Attitudes Toward Past Campaigns IV. Anti-Tobacco Interventons Limitations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15 Policy Recomendations . . . . . . . . . . . . . . . . . . . . . . . 15 Anti-Tobacco Messaging . . . . . . . . . . . . . . . . . . . . . . 17 Recomendations Best Practices. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 4 | FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNTIES “I got tired of being called a sissy” Focus Group Findings on Tobacco Use in LGBT Communities Background Cigarette smoking is the leading cause of preventable disease and death in the United States.1 Rates of tobacco use are particularly high among lesbian, gay, bisexual and transgender (LGBT) youth and adults.2 Though national and state estimates of tobacco use by sexual orientation are limited, systematic reviews of available research indicate that smoking rates among gay and bisexual men are 27% to 71% higher and rates among lesbian and bisexual women are 70% to 350% 1 U.S. Department of Health and Human Services. The Health Consequences of Smoking—50 Years of Progress: A Report of the Surgeon General. Atlanta: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Office on Smoking and Health, 2014 [accessed 2014 Jul 14]. 2 Corliss, H. L., Wadler, B. M., Jun, H., Rosario, M., Wypij, D., Frazier, A. L., et al. Sexual Orientation Disparities in Cigarette Smoking in a Longitudinal Cohort Study of Adolescents. Nicotine & Tobacco Research, 15, 213-222. higher than the general population.3 Research suggests that LGBT disparities in tobacco use are fueled by stress disparities, little research has been conducted on the effectiveness of antitobacco advertisements, campaigns Smoking rates among gay and bisexual men are 27% to 71% higher and rates among lesbian and bisexual women are 70% higher than the general population. due to stigma and discrimination, targeting by the tobacco industry and poor access to effective tobacco cessation programs. Despite clear 3 American Lung Association. (n.d.). The LGBT Community: A Priority Population for Tobacco Control. Retrieved from http://www.lung.org/ stop-smoking/tobacco-control-advocacy/reportsresources/tobacco-policy-trend-reports/lgbt-issuebrief-update.pdf and treatment programs for the LGBT population. FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNITIES | 5 Purpose of Study In 2013, the Michigan Department of Community Health (MDCH) provided funding for Affirmations to facilitate focus group interviews with LGBT-identified individuals to discuss the effectiveness of anti-tobacco campaigns, policies and treatment services. This report summarizes these interview findings and provides recommendations for creating LGBT culturally competent tobacco cessation messages and policies that aim to reduce tobacco use in LGBT communities. Methods To be eligible for participation, participants had to be over 18 years old and previously had used tobacco. This included current, previous and casual users of all forms of tobacco. Recruitment efforts relied on the established networks of the LGBT community centers engaged in this project. Eligible participants were informed about the project through email, social media and in-person contact. Recruitment was conducted by staff and interns at Affirmations and Kalamazoo Gay Lesbian Resource Center (KGLRC). An interest questionnaire was distributed via email and Facebook to gauge participant eligibility, availability and pertinent demographics. Participants who were eligible and whom availability aligned with other participants were contacted by community center staff and invited to participate (See Appendix for Recruitment Flyer). Three focus groups were conducted at Affirmations, two focus groups and one interview were conducted at Kalamazoo Gay and Lesbian Resource Center (KGLRC), two focus groups were held in Ann Arbor (one at the Jim Toy Community Center and one at an off-site location) and one focus group was held at Battle Creek Pride. All focus groups were conducted between July 30, 2012 and October 17, 2012 (See Appendix for Focus Group Log). Concerned with adequately representing the diversity found within LGBT communities, Affirmations and KGLRC staff assembled the focus groups in order to maximize the diversity of participants and arranged specific groups for historically unrepresented populations within LGBT communities. Affirmations conducted a person of color specific focus group and a transgender specific focus group. KGLRC conducted a woman specific interview when other recruited participants did not attend the scheduled focus group. (See Appendix for Participant Demographics). All focus group facilitators had experience with qualitative interviewing and group facilitation as well as reflected the key demographics of the focus group he/she/ze was facilitating. When necessary, facilitators were contractually hired. Upon arriving for a focus group, participants received 6 | FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNTIES an information sheet about the project, a confidentiality form and brief questionnaire of their demographic information and tobacco use. Participants signed the confidentiality form, completed the questionnaire and kept the information sheet for their records. At the end of each focus group, participants received a $20 gift card to Meijer. The focus group guide addressed three main objectives: (1) Behavior and Attitudes Regarding Tobacco Use, (2) Tobacco Use Cessation and (3) Awareness of Tobacco Use Campaigns and Media Messages. To facilitate discussion about anti-tobacco messaging strategies, participants were asked to evaluate the effectiveness of three separate campaigns: (1) one Truth Campaign ad, (2) two CDC Tips from Former Smokers ads, and (3) two ads sponsored by The Bill DeFrank LGBT Center and The LGBT Center Orange County (See Appendix). In the final segment of the discussion, moderators distributed a diagram of the Social Ecological Model and explained the theory within the context of tobacco use. Participants were then asked to consider which level of influence (individual, relationships, community and/or policy) would most effectively target tobacco use in the LGBT community (See Appendix for Focus Group Questions). Analytic Strategy The results of the focus groups were analyzed by a Master of Public Health student at the University of Michigan School of Public Health. Data was analyzed with a question-driven approach4 through a web-based analysis software called Dedoose. First, a questions and methods matrix was created to identify the overarching themes addressed in the focus group guide (e.g. Tobacco Use, Quit Attempts, Attitudes toward Ads/Campaigns) and the questions designed to capture this data (e.g. Why did you begin using tobacco?). Data analysis then began with open coding of the transcribed interviews. Open coding yielded a list of preliminary codes and themes, which were then collapsed and refined into a final codebook. The codebook included definitions, examples and inclusion and exclusion criteria to guide focused coding of the transcripts. Each interview was coded according to this final codebook. Code excerpts were then organized to fit under specific themes, and themes were reviewed to ensure consistency with overall data. This final report presents these themes using participant quotes and provides summary conclusions of the overall data. 4 Patton, M. Q. (2002). Qualitative research and evaluation methods (3 ed.). Thousand Oaks, Calif.: Sage Publications. Summary of Findings I. Tobacco Use Age of Debut In the United States, approximately 70% of current adult smokers initiate tobacco use before the age of 18. The majority of smokers initiate tobacco use around the age of 11 and many meet the criteria for addiction by the age of 14.5. In order to understand the developmental stage and social context in which participants starting using tobacco products, participants first discussed their age at tobacco “I wanted to smoke because I got tired of being called a sissy. I got tired—I was one of those kids that you could tell from the time I was walking I was really feminine always. So I got picked on. I got called names. So I started smoking just so I could look tough.” use debut and the most salient motivations behind their initiation. The majority of participants reported initiating tobacco use between the ages of 13 and 18, or during enrollment in high school, and cited social pressure or desire to gain acceptance into social circles as a primary motivation. Slightly fewer participants reported initiating tobacco use before the age of 13. Interestingly, nearly half of the participants reporting initiation before age 13 identified as transgender and cited discomfort with gender identity as a primary motivation: 5 American Lung Association. (2014). What FDA Regulation of Tobacco Products Really Means. Retrieved from http://www.lung.org/stop-smoking/ tobacco-control-advocacy/federal/fda-regulates-tobacco/what-fda-regulation-of. html FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNITIES | 7 “I wanted to smoke because I got tired of being called a sissy. I got tired—I was one of those kids that you could tell from the time I was walking I was really feminine always. So I got picked on. I got called names. So I started smoking just so I could look tough.” (AFF #1) Additionally, both transgender and non-transgender participants reporting tobacco use before the age of 13 were most likely to indicate that multiple family members were active smokers. Many described a home environment in which tobacco use was highly normalized: allowed them to initiate tobacco use without strong resistance from parents, guardians or siblings. Prior to initiating tobacco use, some participants even reported being actively enlisted in a family members’ tobacco use: “Everybody around me smoked basically. Mom did, dad did, aunt, my uncles all did. And if they didn’t smoke, they chewed…tobacco use was extremely common.” (AFF #1) Other participants reported that family tobacco use enabled greater accessibility to tobacco products that were regulated outside the home environment: Fewer participants reported initiating tobacco use after the age of 18. These participants were more likely to report initiating tobacco use as a coping mechanism than any other age group. Coping mechanisms included using tobacco to manage stress or anxiety or in response to a traumatic event (e.g. parents’ divorce or end of an intimate relationship): “My entire family almost entirely smokes. So the idea of having a cigarette was not unusual for me. I think I was probably like 12. Cause I remember hiding. Like I would steal a pack of my step-mother’s cigarettes ‘cause she always had so many I just knew she wouldn’t just miss this one.” (JTCC #1) “Everybody around me smoked basically. Mom did, dad did, aunt, my uncles all did. And if they didn’t smoke, they chewed… tobacco use was extremely common.” “Then when I was about 19 I went through my first breakup and that’s when I actually started smoking. Smoking was one of the avenues that I chose to kind of face the breakup. I tried alcohol and marijuana, just rollercoasters. I tried different things and smoking was one of the avenues that I tried to get numb with.” (AAFM #1) Motivation for Debut Family members’ tobacco use behaviors were the most commonly reported motivation for initiating tobacco use. Many participants reported growing up in home environments in which tobacco use was very normalized and acceptable. For some participants, this normalization “But I mean, as a child, I remember my mom would say— and I think this is what started it. You’re not really gonna believe this, but my mom would say, ‘Bring me a cigarette.’ She’d tell me to go get her a cigarette from her pack. ‘Go get the cigarette from the pack.’ Sometimes she would even say…’Go ahead and light it.’” (AFF #2) Tobacco use behaviors of friends and intimate partners similarly played an important role in motivating tobacco use. Many participants reported using tobacco as a way to gain inclusion or acceptance into social circles, to ease conversation in social interactions, or to bond with an intimate partner. Social motivation was particularly salient for transgender participants, who recounted being excluded from social circles and activities for their chosen gender expression: “I was in everybody’s same situation where I got bullied a lot and whatnot. And then high school came around and I actually started making some friends. And everybody was smoking, so I kind of just joined in with that, that kind of perpetuation. And I guess it’s never stopped since then.”(AFF #1) In later discussions, the extent to which participants used tobacco for social reasons impacted their success in quitting tobacco. Participants who felt that their smoking status was largely dependent on the smoking status of friends or intimate partners reported more successful quit attempts when their social environment became less tobacco-friendly. However, participants who began smoking in the home environment or used tobacco as a coping mechanism were less likely to quit if their social surroundings changed. Feelings about Tobacco Use In order to identify the factors that facilitate or discourage 8 | FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNTIES continued tobacco use, participants were asked to describe any positive thoughts, feelings or beliefs about their past or current tobacco use. Most participants reported positive feelings about the social aspects of tobacco use, included easing social interactions with potential friends or partners, networking with individuals they would not otherwise meet, and feeling a sense of community with other tobacco users. A participant who reported initiating tobacco use in response to the stress of the college environment said: “I remember being a freshman in college, and if you smoked, you instantly had an opportunity to start a conversation with people, ‘cause everyone from the dorms would smoke in one area. You could meet people and start a conversation easily.” (KGLRC #3) Socially-driven tobacco use was particularly common in LGBT-specific environments, such as bars and clubs, where proximity to other smokers significantly increased the temptation to smoke. Many participants recalled using tobacco in bars and clubs prior to implementation of indoor smoking bans and suggested that tobacco use became closely linked to engagement in the LGBT social scene, alcohol consumption and other substance use. In addition to social benefits, many participants expressed appreciation for the stress-relieving properties of tobacco. While many participants described stress relief as a physiological response to nicotine, others suggested that taking a “smoke break” to leave a stressful work or social environment also alleviated stress: Despite identifying some positive aspects of tobacco use, most participants were more readily able to describe negative thoughts and feelings about their use. The vast majority of participants described current or anticipated health consequences of tobacco use. Participants who were already experiencing health consequences reported decreased lung capacity, higher frequency of illness (e.g. common colds, bronchitis) and diminished fitness performance. Many told stories of friends or family members who had struggled with or succumbed to smoking-related illnesses and how these experiences had intensified cognitive dissonance about their own tobacco use behavior. Expressions of cognitive dissonance were often followed by frustration with the addictive power of tobacco products. One participant noted: “You’re an addict. When you’re an addict, all you care about is that next fix, and it doesn’t matter if it’s alcohol, meth, cigarettes. They’re a drug. I mean, the addicted mind is very different than the non-addicted mind. And even though cigarette smoking is the most socially acceptable…drug to just do out in the street, around your kids, and everywhere, it doesn’t mean that those [aren’t] addicted brains.” (KGLRC #3) II. Quit Attempts Motivation for Quitting Regardless of current smoking status, nearly every participant reported a desire to quit or a quit attempt at some point during their smoking history. Participants who had attempted to quit tobacco cited a wide array of “It was an opportunity to not have to do something. If motivations. Many reported that influence from family, things are getting tense, if there’s a lot going on, it was friends, or intimate partners played the most significant an opportunity to take that quick ten-minute break and role in initiating and following through with a quit attempt. go back.” (KGLRC #3) Family influence often included the death of a loved one due to a smoking-related illness, a desire to protect family members, particularly children, from the effects “It was an opportunity to of second-hand smoke, and strong encouragement from family members. not have to do something. If things are getting tense, if there’s a lot going on, it was an opportunity to take that quick ten-minute break and go back.” “What got it for me was my mom’s husband got lung cancer. And seeing him in the hospital. He could barely breathe and seeing somebody not being able to breathe and knowing that you were gonna do that to yourself, for me, that was the final straw.” (AFF #3) Other participants suggested that peer influence was a more powerful motivator. For participants who primarily enjoyed the social aspects of tobacco use, transitioning from a smoker-friendly social circle to a less accepting group of friends was sufficient motivation to quit tobacco. Similarly, participants who remained within the same FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNITIES | 9 social circle but witnessed close friends quitting tobacco the potential long-term consequences of tobacco use, found it to be a powerful impetus to attempt quitting: most participants focused on current health issues and their impact on daily functioning: “Well, quitting got a lot easier once a lot of my other friends had quit, ‘cause when I had a big group of friends “So like I’ll wake up three days in a row feeling like chest who were smoking, I didn’t really feel the need to quit is tight and okay, I gotta stop doing this.” (JTCC #1) smoking, even though I knew full well that it was bad for me. But once everybody else started quitting, it got Other participants planned to quit smoking as a step toward achieving an overall healthier lifestyle. Many a lot easier.” (KGLRC #3) participants considered quitting tobacco as the first step “And seeing him in the to consuming less alcohol, eating healthier and attaining greater levels of fitness and athletic performance. For hospital. He could barely these participants, family, peer and media influence that emphasized the potential benefits of quitting tobacco, breathe and seeing rather than the negative consequences of continued use, was more effective at strengthening intention and somebody not being able to resolve to quit. breathe and knowing that you were gonna do that to yourself, for me, that was the final straw.” Though some participants successfully quit tobacco based on these sources of motivation, others found that quitting tobacco for another person or group was unlikely to be a permanent behavior change. This was particularly true for participants who had attempted to quit for an intimate partner: “The first time I quit was when I was 18, because the girlfriend I had at the time did not like that I smoked, and at 18 our relationship was more important than my own wants and desires, so I quit for her. But then as soon as we broke up, I started smoking again.” (KGLRC #3) In many instances, discordant smoking statuses between intimate partners caused non-smokers to reinitiate use or led to termination of the relationship. Similarly, participants who intended to quit tobacco found the process very difficult if an intimate partner did not simultaneously make a quit attempt. In addition to family and peer influence, many participants cited current or anticipated health consequences as a motivation to quit. Many participants expressed strong awareness of the potential outcomes of continued tobacco use, including increased risk of lung cancer, stroke and heart attack. However, despite awareness of “The first time I quit was when I was 18, because the girlfriend I had at the time did not like that I smoked, and at 18 our relationship was more important than my own wants and desires, so I quit for her. But then as soon as we broke up, I started smoking again.” Method of Quitting Participants who had attempted to quit tobacco cited a variety of methods for initiating and sustaining cessation. A significant majority reported using prescription drugs (e.g. Chantix, Wellbutrin, Zyban) and other Nicotine Replacement Therapy (NRT) (e.g. patch, gum, lozenges, inhalers). A strong determinant of success when using prescriptions drugs or NRT was the extent to which the participant experienced negative side effects. Commonly reported side effects included nausea, dry mouth, irritation caused by the patch adhesive, headaches and mood swings. Some participants also faced difficulty when access to prescriptions or NRT was interrupted due to 10 | FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNTIES insufficient insurance coverage, lapses in medical care, “I know that when I worked at Planned Parenthood our or housing transience. health insurance, one of the requirements to get the cheaper health insurance was that you didn’t smoke, and In addition to NRT, numerous participants discussed the if you did smoke then to get that cheaper insurance you growing popularity of electronic cigarettes (e-cigarettes). had to be part of a cessation program where you had Participants varied on their understanding of the someone, the QuitNic program would call you and check ingredients and health effects of e-cigarettes and there was up on you and so I know that for many of my co-workers disagreement as to whether transitioning to e-cigarettes that was a motivation to quit.” (KGLRC #1) constituted success in quitting tobacco or merely a step toward complete abstinence. Often, participants reported While some participants found lower insurance premiums experimenting with many quit methods simultaneously and employer coverage of enrollment costs to be powerful or across quit attempts: incentives to quit tobacco, some found that the length of the program or number of sessions with a cessation “...to get the cheaper health counselor were insufficient to initiate permanent change. Many felt that a long-term and ongoing relationship with a cessation counselor would create a greater sense of insurance was that you didn’t accountability and prevent relapses. smoke, and if you did smoke then to get that cheaper insurance you had to be part of a cessation program where you had someone, the QuitNic program would call you and check up on you and so I know that for many of my co-workers that was a motivation to quit.” “I have tried the patch and the gum and the electronic cigarettes. And I think for me it’s both a combination of the physical and the psychological. Both are very strong. So sort of they might help with the physical, but that doesn’t stop the psychological stuff that will lead me back or the social like wanting to make friends and bond with people over smoking.” (JTCC #1) While some participants reported successfully overcoming the physiological addiction to nicotine with prescription drugs and NRT, the need to address the psychological aspects of nicotine addiction led some participants to enroll in cessation therapy programs. The majority of participants who had utilized cessation therapy had been motivated by employers who offered lower insurance premiums for non-smokers or smokers enrolled in cessation therapy. Michigan Quit Line Awareness of the Michigan Quit Line was consistently low across all the focus groups. Among participants who were aware of the Quit Line very few reported a desire or intention to utilize the service. Many participants felt that they were unlikely to develop a trusting relationship with a counselor over the phone, thus decreasing the likelihood that they would actively engage with the counselor’s recommendations. Participants who focused on the counseling and therapy component of the service felt that they would be more likely to accept the guidance of a friend, family member, or physician. Additionally, participants expressed reluctance to solicit advice and encouragement from a counselor they were unsure had experienced nicotine addiction and the various challenges in quitting. Participants who viewed the program as a source of information and referrals felt that they could easily find comparable information online. Other participants expressed skepticism that calling the line would inspire a quit attempt, yet recognized the potential value of calling the line after internally committing to quit. “...there’s some hesitance to call the general 1-800 numbers among LGBT folks, just because you don’t know if the person on the other line is going to be an ally or a safe person.” FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNITIES | 11 “I could see myself calling but only after I made some sort of internal decision. Like I could easily see myself being like, okay, now’s the time I’m gonna do it. Time to get all of the resources and go and buy the patch and buy the gum and set up—and do everything. And I could see calling some number as part of that.” (JTCC #1) A few participants directly mentioned reluctance to use the service out of fear that their counselor would not be LGBT-friendly and affirming. “I also think that, in general, there’s some hesitance to call general 1-800 numbers among LGBT folks, just because you don’t know if the person on the other line is going to be an ally or a safe person to talk about, and so even if you’re just talking about needing to quit cigarettes, a lot of times they inquire why you’re smoking or what stresses or how many times you would talk—if you’re gonna mention your partner or something.” (KGLRC #3) III. Attitudes toward Past Campaigns To facilitate dialogue about the effectiveness of anti-tobacco campaigns, participants were asked to remember past campaigns and advertisements that were particularly appealing or memorable. Participants were then shown a series of four print advertisements featuring various messages, identities and imagery in order to focus the conversation on these aspects of the campaign (See Appendix). For analysis, participants’ attitudes about these anti-smoking advertisements and campaigns were coded as statements about the source or sponsor, identities represented, target audience, perceived message undertone or perceived message of the campaign. Source/Sponsor Though participants were often unaware of the source of an advertisement or campaign, many expressed negative feelings toward campaigns perceived to be sponsored by governmental agencies: “It’s just like, ‘Yeah, yeah, yeah, government telling me something else I’m not supposed to do.’” (KGLRC #1) For many participants, this reluctance stemmed from the belief that the government had too often attempted to force lifestyle and behavioral changes on the LGBT community. Some participants felt that governmentsponsored messages rarely promote the best interests of the LGBT community and are therefore easier to discredit. Interestingly, participants were more willing to accept information from an agency or organization directly associated with the message content. For instance, participants were more responsive to information about the risks of lung cancer if the ad was sponsored by the American Lung Association rather than the Centers for Disease Control and Prevention (CDC). “...it says it’s from an LGBT organization, so at least it’s LGBT people telling me not to smoke instead of corporate mainstream society telling me not to smoke.” The majority of participants responded more positively to campaigns perceived to be sponsored by LGBT-specific or LGBT-friendly organizations: “So I think one of the reasons that I like this very last one is because it says it’s from an LGBT organization, so at least it’s LGBT people telling me not to smoke instead of corporate mainstream society telling me not to smoke.” (AAFM #1) The sentiment that campaigns were more effective if they were presented by counterculture or “insiders” of the LGBT community was echoed several times throughout the focus groups. This positive reception was extended to musical acts or celebrity figures that were considered to be part of counterculture. One group discussed the powerful impact of hearing anti-tobacco messages from LGBT-identified artists and performers such as Tegan and Sara and RuPaul. Representation Similarly, many participants reported that they were more like to pay attention to an advertisement or campaign with characters or spokespeople who were representative of their identities. When shown three LGBT-specific advertisements, one depicting a lesbian couple and two portraying young gay men, many participants agreed that they were more likely to consider the ad’s message than if the characters were perceived to be heterosexual. In addition to identity representation, some participants argued for the importance of lifestyle representation. Rather than depicting LGBT-identified characters in settings 12 | FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNTIES stereotypically associated with the LGBT community (e.g. bars and clubs), characters should be represented in settings of stability and empowerment (e.g. in the workplace, at home with family). “It kind of puts the LGBT community right smack dab in the middle of normal society, you know? It doesn’t segregate us out and make us unique because of this. And I’m thinking that the ads should picture us as part of society and tell our stories from…our perspective as part of society, as opposed to it being something uniquely different.” (AFF #3) Participants also stressed the value of showing the diversity of the LGBT population and avoiding common media stereotypes about the community. Many participants emphasized the importance of portraying characters of varying ages, races, body types and gender expressions. Some female participants felt that advertisements targeting the lesbian community played into stereotypes of lesbian women as masculine, angry and unhealthy, while some male participants felt that past advertisements had presented gay men as shallow and hypersexualized. Participants across all focus groups expressed three main attitudes about the use of sex and nudity in campaigns. Some argued that messages containing sexual images or messages effectively grabbed the audience’s attention, yet recognized that it was more likely to appeal to younger audiences. “This is really more [for] the young gay man because here you’ve got a hot body. We know sex sells. And I think that’s actually a very effective ad.” (AFF #1) Other participants suggested that though sex and nudity were likely to grab attention, they were ultimately ineffective because they detracted from the seriousness of the intended message. “If what you’re trying to say is totally disregarded because of how you’re saying it, I don’t think that it’s effective, regardless of how you do it. I mean like I said, if you like to see that, that’s great, but are you getting the message that they’re trying to convey?” (AFF #3) In many groups, the most impassioned responses came from participants who felt that it was offensive to use sex and nudity to target the LGBT population. “You know just cause I’m a gay person doesn’t mean that I’m just gonna all of a sudden gravitate toward the sexy pictures. Cause I got more things that are relevant in my life than just the sex. You know that’s stereotypical kind of. Critiquing me as a gay man that all I think about is sex. Well that’s just not true. We gotta come out of the darkness, you know. We have other things to think about.” (BCP #1) It is worth noting that significantly more participants found sex and nudity to be ineffective and offensive. Numerous participants expressed strong distaste for the implication that LGBT individuals could only be reached through this strategy and suggested that they would immediately discredit a campaign that depicted nude or sexually provocative characters. Though this response was not unanimous, it was apparent that the audience reached with sex and nudity was significantly smaller than the audience offended by this strategy. Message Undertone and Content Though participants expressed relatively clear and consistent preferences for the campaign source and representation, beliefs about the effectiveness of certain message undertones and content varied significantly across all groups. While the majority of advertisements participants recalled from the past contained messages about the health consequences of tobacco use, participants disagreed as to whether this content was effective. One participant stated: “Cause somehow it doesn’t faze me at all if somebody tells me something’s gonna kill me. But if it’s gonna make me lose a leg, then I start listening. I mean for me I think a big part of that is being…(21 years old)” “I mean I think personally that, the ones about the health issues are the ones that stand out the most. Those are the ones that are like, oh, yeah, that kind of is what my lungs look like. And then I mean so that, I don’t really dismiss that as like, oh, well, whatever. I mean you do make excuses for yourself just while you’re smoking. But, you know in the back of your mind you know that you are whatever the percentage greater of cancer is and you know all the health issues.” (BCP #1) Other participants argued that health-based messages FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNITIES | 13 had been used for so many years that they no longer elicited a fearful response: “You’ve put lung cancer on the side of my box for the last 12 years; I get it, I get it. It might cause lung cancer but it apparently hasn’t stopped me—you’ve gotta play to every angle.” (KGLRC #1) Some participants suggested that health-based messages would be more effective if they focused on morbidity and short-term health consequences rather than mortality and long-term consequences. “Cause somehow it doesn’t faze me at all if somebody tells me something’s gonna kill me. But if it’s gonna make me lose a leg, then I start listening. I mean for me I think a big part of that is being…21. Like I don’t think that I’m gonna die. I cognitively know that, but that does not really mean anything to me. I have no concept of what that is. But I can imagine what it would be like to not be able to get out of bed.” (JTCC #1) “It sounds like ads kind of underestimate the intelligence of smokers. Maybe they just assume that smoking is dumb and so they don’t have to play to your intelligence to get you to stop.” Throughout discussion of health-based messages, participants disagreed on the effectiveness of shock value and scare tactics. Those who found scare tactics ineffective argued that it was too easy to dismiss and distance oneself from overly dramatic and extreme stories of the health consequences of tobacco use: “I think a lot of them play on scare tactics, which aren’t effective and have been shown not to be effective, having these just extreme points to where you can differentiate yourself from that individual.” (AAFM #1) Some participants focused on message undertone rather than message content. While many were able to recall advertisements or campaigns that emphasized the negative consequences of tobacco use, few were able to think of advertisements that had focused on the potential benefits of quitting tobacco. Most participants argued that they were sufficiently aware of the negative effects of smoking and would rather see how the social, health and financial benefits of quitting could outweigh the positive aspects of smoking. One participant suggested: “The ad that would target me personally would be the ad that depicted someone who was healthy, someone working out, someone exercising and wanted to stay on that track. An ad with some guy running and then he stops and says, ‘I just ran three miles and I could never do that if I was smoking.’ That’s the kind of stuff that would hit me.” (AFF #3) “An ad with some guy running and then he stops and says, ‘I just ran three miles and I could never do that if I was smoking.’ That’s the kind of stuff that would hit me.” A preference for pro-health messages was discussed in nearly every group. Closely tied to this suggestion was avoidance of blanket directives like “Quit Smoking.” Participants felt that empowering messages such as “You Can Quit Smoking,” or detailing the steps individuals could take to begin the process of quitting tobacco were more likely to elicit a positive response from individuals who had already been inundated with other anti-smoking ad messages. When discussing message undertone, some participants focused on the difference between ads and campaigns using emotional pleas and those that utilized a more cognitive and intellectual approach. While some felt that emotional pleas effectively personalized an ad’s message, others felt that the overuse of emotional advertising allowed individuals to disregard the message content: “It sounds like ads kind of underestimate the intelligence of smokers. Maybe they just assume that smoking is dumb and so they don’t have to play to your intelligence to get you to stop, but it definitely seems like they don’t try to appeal to people on an intellectual level and tend to make emotional pleas more, which is a lot easier to ignore for some people.” (AAFM #1) 14 | FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNTIES After discussing attitudes toward past campaigns, participants were asked to suggest messaging strategies that were most likely to effectively reach the LGBT community. Participants across all groups emphasized the value of pro-health, rather than anti-smoking, messages and placing LGBT characters in settings of strength and empowerment. Participants who felt that anti-smoking campaigns overutilized emotional messaging recommended that advertisements promote messages that require cognitive processing. One participant suggested emphasizing the money that could be saved or directed toward more fulfilling endeavors if an individual were to quit tobacco. Others felt that the political activism and social movement aspects of the Truth campaign were very effective at eliciting cognitive processing. Finally, some younger participants suggested that advertisements target adolescent and young adult tobacco users by depicting the life trajectory of an individual who begins smoking at a very early age. Rather than focusing on health consequences likely to occur several years from now, participants recommended centering on the effects most likely to impact an adolescent’s quality of life (e.g. impaired physical fitness, personal hygiene). Anti-Tobacco Interventions The Social Ecological Model, developed by Urie Bronfenbrenner in the 1970’s, theorizes that behavior affects and is affected by multiple levels of influence. In these focus groups, moderators explained the theory using four main levels of influence: individual, relationships, community and policy. Participants were asked to identify which level of influence should be targeted in order to most effectively reach the LGBT population. The resulting discussion highlighted campaigns and interventions that had been effective and ineffective in the past and how these interventions could be improved upon to effect greater change. Participants’ exposure to different campaigns and interventions was primarily affected by their age and employment status. For instance, younger participants were more likely to cite the effectiveness of school campuswide smoking bans, whereas older participants were more likely to discuss workplace policies toward smokers. Some younger participants found that campus-wide smoking bans, which prohibit tobacco use within close proximity of school buildings, effectively inconvenience smokers by forcing them to find smoking-approved locations further from residence halls or classroom buildings. The impact of campus-wide smoking bans intensifies during the winter months when participants are reluctant to walk greater distances for a smoking break. Participants generally agreed that smoking bans, combined with free tobacco cessation programs on campus, had significantly reduced tobacco use on school campuses. Older participants often discussed policies toward smokers in the workplace. Many participants mentioned organizational policies that offered lower health insurance premiums to employees who did not use tobacco. For tobacco-using employees, several companies offered free tobacco cessation counseling, though sessions were often capped at four visits and did not allow employees to establish ongoing relationships with counselors. While some participants found lower insurance premiums to be a significant motivator, others felt that the cost differential for smokers and non-smokers could be increased to add stronger incentive: “I think it would have to be a pretty big one on the insurance because I know for us at work we have…a health and fit insurance. If you don’t smoke your insurance is $4.00 of your paycheck. If you do I think it’s [only] $8.00.” (KGLRC #1) “I think if it was more socially acceptable for folks to take a 10-minute walk, say, instead of a 10-minute cigarette break, and it was encouraged to do that by employers or by organizations or schools…” In addition to organizational policies, older participants found that norms around “smoking breaks” during the work day made it more difficult to quit tobacco. “When you don’t smoke, you don’t get to take those breaks during work. When you do smoke, then it’s totally acceptable to go outside for 7 minutes and stand there and then come back inside, maybe five times a day. And so I think if it was more socially acceptable for folks to take a 10-minute walk, say, instead of a 10-minute cigarette break, and it was encouraged to do that by employers or by organizations or schools…” (KGLRC #3) Participants suggested that in addition to health and wellness insurance premiums, there should be an organizational shift toward encouraging “wellness” breaks during work FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNITIES | 15 hours to ensure stress relief and maximum productivity. Older participants were also more likely to discuss the impact of indoor smoking bans. Many participants suggested that forcing smokers to leave the workplace, bar or club to smoke had significantly diminished the sense of community around smoking and had persuaded many social smokers to quit tobacco. While many participants expressed resentment toward the government for implementing these bans, many also agreed that it had effectively achieved the goal of reducing tobacco use: “Am I right that smoking is declining? And I feel that is partly at least due to the government, or that we as a community, a bigger community. And through that, the government is setting policies that are signaling to people that this is taken seriously as a health risk, whereas it didn’t before. I think that it is making a difference, because I remember being able to smoke at my desk at work. Everybody did, and then slowly—it’s slowly being seen as this is not acceptable anymore.” (AFF #3) Conversely, some participants argued that the will to smoke and the power of addiction ensured that tobacco users would find ways to adjust to new policies. “But I think we have adjusted to smoke-free laws, though. We have adjusted to them in restaurants; I remember when you used to be able to smoke at ___, now we’ve just adjusted to how we do it.” (KGLRC #1) Many participants reported that imposing greater taxes or raising the price of tobacco was not effective in encouraging tobacco users to quit. Older participants expressed frustration over the constantly rising price of tobacco, yet very few felt that it was significant enough to motivate behavior change: “Like I said, you know, for people that started when it was 75 cents, I started when it was $3.50 but I’ve made it okay to spend $7.00 a day like I do now and it is went up to $8.00 tomorrow I’d pay it and if I move to Chicago next week I’d figure out how to pay $12.00.” (KGLRC #1) Across age groups, a significant number of participants agreed that LGBT-specific tobacco cessation support groups would provide the strong social necessary to successfully quit tobacco. Some participants detailed their experience in other support groups, including Alcoholics and Narcotics Anonymous, and suggested that a model of accountability (through sponsorship) was particularly helpful. Others focused on the importance of establishing anti-tobacco social and community groups to drive the cultural shift away from substance use. Limitations This project encompassed several limitations. Since participants were contacted through LGBT community centers, recruitment was based on LGBT identity versus behavior or desire. For instance, it is possible that people who identify as LGB have different opinions about quit tobacco messages than the much larger group of people who have same-sex attraction and/or sexual behavior but do not identify as LGB. This approach eased recruitment efforts by utilizing established LGBT networks yet also narrowed the populations sampled. Furthermore, in order to create a supportive environment for a population that is marginalized, participants were grouped according to salient identities (LGB, transgender, person of color). While this allowed participants to engage with others with similar experiences, grouping participants by sexual or gender identity may have decreased the likelihood that participants would explicitly attribute their experiences to these identities. This limitation became apparent during data analysis, when we found that very few participants specifically cited their sexual or gender identity as the cause for a particular attitude or behavior. Conversely, however, we acknowledge that these same individuals may not have felt comfortable speaking openly about their sexual/gender identities in a mixed environment. Although significant effort was made to recruit a diverse group of participants, it is likely that portions of Michigan’s LGBT communities were not involved in this project. First, geographic diversity is limited because all the focus groups were conducted in the southern half of the Lower Peninsula. Second, all focus groups were conducted in English, so non-English speaking populations were not included in the participant sample. Third, since focus groups were held at LGBT community centers, individuals living in rural communities were underrepresented. Fourth, since recruitment was conducted through email lists, Facebook and websites, individuals without Internet access were also left out of this study. There are also some limitations inherent to focus group methodology. Perhaps the most important limitation is the ability of the moderator to guide conversation without directing it. Though all moderators in this study followed the same focus group guide, interview transcription revealed slight differences in question prompts and follow-up commentary. Another limitation inherent to the social structure of focus groups is the presence of “groupthink,” in which participants’ desire for group harmony and consensus minimizes elicitation of a wide range of attitudes and beliefs about a particular issue. This social process can allow more outspoken voices to 16 | FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNTIES dominate the conversation and encourage consensus from more reserved participants where it does not naturally exist. Finally, as focus groups do not take place in a naturalistic environment, it can be difficult to measure the discrepancy between a participant’s hypothetical reaction to a specific advertisement and what might actually occur. However, participants’ commentary on message content, representation and overall themes can be usefully integrated into strategies for improving the reach and relevance of advertisements for the LGBT community. Finally, the focus group interviews were not transcribed with participant tracking, so it was difficult to follow each participant longitudinally throughout the interview. This minimized the extent to which conclusions about past or current tobacco use could be linked to age or context of tobacco initiation. Further research, such as individual in-depth interviews, would be necessary in order to obtain more specific information regarding individual participant trajectories. Policy Recommendations The following recommendations were developed through analysis of participants’ personal experiences with tobacco use and statements about effective anti-tobacco policy interventions. 1. Address Tobacco Industry Targeting of the LGBT Community Several focus group participants discussed the effects of LGBT community targeting by the tobacco industry. The National LGBT Tobacco Control Network has identified three primary ways in which the tobacco industry targets the LGBT population: (1) Direct Advertising (advertising in LGBT-specific magazines or media outlets), (2) Indirect Advertising (advertising in media outlets with high LGBT readership), and (3) Event/Program Sponsorship (providing funding for LGBT-specific initiatives, publications or programs).6 Organizations serving the LGBT community should strive to identify alternative funding sources to tobacco industry advertisements and sponsorship, thereby decreasing the industry’s financial hold on the community and minimizing community exposure to pro-tobacco messages. 6 Stevens, P. LGBT Populations and Tobacco [PowerPoint slides]. Retrieved from http://www.lgbttobacco.org/files/LGBT2ndedition.pdf 2. Expand Tobacco-Free Laws to Include Electronic Cigarettes and Smoking in Casinos Many participants noted the effectiveness of campuswide, workplace environment and indoor smoking bans. A recent report from the Campaign for Tobacco-Free Kids cited conclusions from more than ten studies that smoke-free laws were effective in reducing tobacco use.7 While Michigan’s Dr. Ron Davis Smoke Free Air Law effectively banned cigarette smoking in businesses, restaurants and bars, it does not address the growing prevalence of electronic cigarettes. Currently, businesses are allowed to implement their own policies regarding electronic cigarette use. Patrons, public health officials and state policy makers should encourage businesses to include electronic cigarettes in their tobacco-free policies. Furthermore, casinos established before May 1, 2010 and those operating under the Indian gaming regulatory act are exempt from smoke-free bans.8 While legislation impacting businesses on tribal land is inherently difficult to enact, policy makers should advocate for elimination of the exemption for casinos established prior to implementation of the Smoke Free Air Law. 3. Encourage Schools and Community Centers to Host Parent-Child Tobacco Prevention Education Workshops A significant number of focus group participants, particularly those who initiated tobacco use before the age of 13, reported having multiple family members who were active smokers. While Michigan’s tobacco prevention education begins as early as kindergarten, the curriculum does not include parents and authority figures in the learning process. Children who are taught to avoid tobacco yet live in a home environment in which tobacco use is normalized and acceptable may experience confusion and fail to internalize the message. Requiring parents and guardians to attend tobacco prevention workshops with their children could serve the dual purpose of educating children about tobacco use and intervening with family tobacco use. 4. Support Employers and Insurance Companies in Increasing the Cost Differential in Health 7 Campaign for Tobacco-Free Kids. (2014). Smoke-Free Laws Encourage Smokers to Quit and Discourage Youth from Starting. Retrieved from http:// www.tobaccofreekids.org/research/factsheets/pdf/0198.pdf 8 Mulder, M. (2010 February 4). Michigan Smoking Ban Exemptions and Enforcement. Michigan Policy Network: Health Care. Retrieved from http://www.michiganpolicy.com/index.php?option=com_content&view=article& id=693:michigan-smoking-ban-exemptions-and-enforcement&catid=43:healthcare-policy-briefs&Itemid=159 FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNITIES | 17 Insurance Premiums for Smokers and Non-Smokers In discussions on quit attempts, some participants described higher insurance premiums for smokers than for non-smokers. Most participants agreed that this financial penalty would be more effective in reducing tobacco use if the cost differential increased drastically. Under the Affordable Care Act, beginning in 2015 health insurance companies will be allowed to charge smokers 50 percent higher premiums than nonsmokers for new insurance policies sold to individuals and small employer groups. Though health and policy analysts disagree as to whether this financial penalty will have the intended effect of reducing tobacco use,9 pairing the penalty with increased employer coverage and expansion of tobacco cessation counseling could increase the likelihood than employees will initiate tobacco cessation. 5. Expand Employer-Coverage for Tobacco Cessation Counseling Programs Participants who had enrolled in an employersponsored tobacco cessation program in order to lower their health insurance premiums felt that there were not enough sessions to establish a trusting relationship with a counselor that would promote long-term cessation success. Though all employersponsored insurance plans must cover tobacco cessation treatment, coverage can vary across plans.10 In order to increase the effectiveness of increasing health insurance premiums for smokers, employers should commit to providing comprehensive coverage to individuals who decide to quit tobacco. 6. Increase the Visibility of LGBT-Friendly and Affirming Spaces That Do Not Involve Substance Use Historically, bars and clubs have been some of the few safe and affirming spaces for the LGBT community. As a result, tobacco use and alcohol consumption are closely linked to social bonding within the community. Increasing the visibility and funding of non-substance related events and venues (e.g. LGBT sports leagues, community centers and cafes) could facilitate a cultural shift toward substance-free events and activities. 7. Establish and Promote Tobacco Cessation 9 Andrews, M. (2013 July 16). A Handful of State Marketplaces Opt Not to Charge Smokers More for Premiums. Kaiser Health News. Retrieved from http://www.kaiserhealthnews.org/features/insuring-your-health/2013/071613michelle-andrews-column-on-premiums-for-smokers.aspx 10 American Lung Association. (2004). Tobacco Cessation Treatment: What Is Covered? Retrieved from http://www.lung.org/stop-smoking/tobaccocontrol-advocacy/reports-resources/tobacco-cessation-affordable-care-act/ what-is-covered.html Support Groups for LGBT Communities Participants consistently expressed a desire for LGBT-specific tobacco cessation support groups. Though many universities offer tobacco cessation counseling groups to students, very few programs are open to the general public. Organizations that primarily serve LGBT communities should conduct needs assessments to determine interest and need for tobacco cessation support groups in their catchment area. 8. Promote Michigan Quit Line as LGBT-Friendly and Affirming A significant barrier for LGBT individuals accessing preventive and curative health care is discriminatory treatment from providers. Focus group participants who expressed hesitance in contacting the Michigan Quit Line noted that they would be more likely to access the service if they knew counselors would be LGBT-friendly and affirming. MDCH should evaluate the cultural competency of the program and its counselors, make necessary improvements, and actively advertise the service as open and affirming to LGBT clients. 9. Expand Public Insurance Coverage of Tobacco Cessation Programs Various structural barriers, including discrimination in employment, can prevent an LGBT-identified individual from accessing health insurance. While expanding employer-based insurance coverage for tobacco cessation programs is beneficial to employed individuals, steps must also be taken to expand coverage under public insurance programs. Michigan’s Medicaid program does not currently provide comprehensive coverage of all treatments, including some Nicotine Replacement Therapy (NRT) options and group counseling.11 Expanding Medicaid coverage for all empirically-supported tobacco cessation treatments could significantly increase the number of lower income individuals who are able to receive treatment. 10. Improve Data Collection on Sexual Orientation and Gender Identity in Health Surveys Though some nationwide health surveys are starting to include sexual orientation questions to measure health disparities among the LGBT population, there is still very little data on tobacco use among this population. Increasing our understanding of tobacco 11 Centers for Disease Control and Prevention. (2014). State Tobacco Activities Tracking and Evaluation (STATE) Program. Retrieved from http://apps. nccd.cdc.gov/statesystem/HighlightReport/HighlightReport.aspx?FromHome Page=Y&StateName=Michigan&StateId=MI#MED 18 | FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNTIES use among the LGBT population will inform future funding allocations and program development. Anti-Tobacco Messaging Recommendations The following recommendations were developed through analysis of participants’ statements about the source, representation, audience and message of anti-tobacco campaigns and advertisements. 1. Provide Grants or Resources for LGBT-Specific Organizations To Produce and Sponsor Tobacco Cessation Ads Several participants expressed opposition to ads perceived to be sponsored by government agencies. This opposition was targeted at agencies most commonly associated with anti-tobacco messages, including the CDC and American Lung Association. However, many participants suggested that they were more likely to consider the message of an ad that was produced or sponsored by an LGBT-specific organization. By providing financial support to reputable and respected LGBT organizations to produce messages tailored to their primary audience, MDCH could increase the relevance, reach and impact of anti-tobacco messages for the LGBT community. 2. Focus On Pro-Health Messages Rather than Anti-Smoking Messages The vast majority of tobacco cessation campaigns focus on the negative health consequences of tobacco use. Participants, however, suggested that it would be more effective for campaigns to focus on the positive health outcomes of successfully quitting tobacco. For instance, participants expressed interest in seeing advertisements about improved lung capacity, increased physical fitness, and overall stronger organ function. Building upon the primary motivations participants cited for quitting tobacco, family/friends and health consequences, pro-health advertisements could depict a former smoker who has regained their health and are now able to dance at their child’s wedding or run a race with friends. 3. Focus Health-Based Messages on Morbidity Rather than Mortality Messages focusing on the negative health consequences of tobacco use often present statistics about death from smoking-related illness. These messages are largely ineffective for younger audiences, whose sense of invincibility allows them to distance themselves from the message. Some participants suggested that while it is difficult to conceptualize death, it is easier to understand disability. Rather than focusing on individuals who have died as a result of smokingrelated illness, ads should focus on individuals who are permanently disabled (e.g. requiring a speaking valve after tracheostomy, leg amputation due to vascular disease). 4. Depict LGBT Individuals in Contexts of Healthy Living and Empowerment Participants expressed interest in seeing LGBT characters in healthy living environments. Rather than showing LGBT individuals at bars and clubs, participants hoped to see them at gyms, parks, or grocery stores. This sentiment was closely linked to a desire to be shown in environments comparable to those of heterosexual characters. For instance, one participant imagined an ad in which an LGBT family was shown at the park playing with their children along side heterosexual families. 5. Present Characters Who Represent the Entirety of the LGBT Spectrum Ads targeting the LGBT community often present stereotypical images of hypersexualized and physically fit men. Many participants argued that this image is not representative of the entire LGBT population and can isolate individuals that do not look similarly. Portraying a diverse range of characters from the entire LGBT spectrum will extend the reach and relevance of ads targeting the LGBT community. FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNITIES | 19 Best Practices After analyzing the focus group findings and building recommendations from the data, literature was reviewed about nationwide best practices for reducing tobacco use among the LGBT community. The most comprehensive report on best practices was published by the Network for LGBT Health Equity and entitled MPowered: Best and Promising Practices for LGBT Tobacco Prevention and Control. Review of our findings against the backdrop of proposed nationwide strategies showed that our data provides substantial qualitative support for many of these recommendations and expand upon new strategies for strengthening tobacco prevention education in schools, addressing barriers to cessation treatment, and reaching the LGBT population through tobacco cessation advertisements. Similarities in policy recommendations include increasing nationwide, state and local surveillance of tobacco use among the LGBT community, expanding tobacco-free policies, improving cultural competency of statewide cessation services, enforcing bans on tobacco industry advertisements and sponsorships, and tailoring anti-tobacco advertisements to the LGBT community. The compatibility of these recommendations suggests that practices endorsed at the national level could be feasible and appropriate within the context of Southeastern Michigan. 20 | FOCUS GROUP FINDINGS ON TOBACCO USE IN LGBT COMMUNTIES Conclusion In the summer and fall of 2013, eight focus groups and one interview were conducted to explore tobacco use among the LGBT-identified Michiganders and provide recommendations to the Michigan Department of Community Health on how to implement culturally competent anti-tobacco campaigns and policies among this population. Findings from these focus groups not only provide strong support for nationwide best practices recommendations, but also present new ideas for addressing tobacco-related health disparities among the LGBT community. Perhaps one of the most important conclusions to be drawn from this report is that the habits and behaviors surrounding tobacco use among LGBT-identified individuals is not significantly different from those of heterosexual individuals. A significant disparity nevertheless persists, commanding the attention of public health authorities. Given this paradox, it is critical to recognize and understand the structural determinants, such as stigma and discrimination, which are fueling tobacco-related Structural, interpersonal, disparities in LGBT communities. Structural, and internalized transphobia interpersonal and internalized transphobia and and homophobia necessitate homophobia necessitate a variety of coping a variety of coping mechanisms that often include substance use. mechanisms that often Individual-level cessation efforts that thoughtfully include substance use. incorporate an analysis of structural determinants Individual-level cessation will be most effective with LGBT communities. efforts that thoughtfully Additionally, targeting the structural conditions that incorporate an analysis of adversely impact LGBT communities could not only structural determinants will decrease tobacco-related disparities, but all health be most effective with LGBT disparities affecting this population. Addressing communities. the root causes of stigma and discrimination and working toward complete LGBT equity may ultimately be the most powerful strategy for mitigating or eliminating LGBT tobacco-related health disparities. 20 | APPENDIX APPENDIX | 21 Recruitment Flyer Have experience with tobacco? Identify as LGBTQ? Affirmations is conducting focus groups to learn more about tobacco use and effective quit tobacco messages in the LGBTQ community. We want to hear about your experiences with tobacco use and quit messages! In appreciation for your time, thoughts and ideas, participants will receive a $20 gift certificate. Food will also be provided at the focus group. Interested? Please click on the link and fill out the survey. A few more details… What are these focus groups? These focus groups are an opportunity for you to talk about tobacco use in a small group discussion. This is a way for us to learn about your personal experiences with using tobacco. You will be asked questions about any previous or current use of tobacco, as well as any experiences with quitting. We’ll also talk about some quit tobacco campaigns - what works and what doesn’t. Who can participate? Anyone who has ever used tobacco! This includes current or previous users, and casual users of all forms of tobacco (i.e. cigarettes, cigars, hookah, chew tobacco, etc.). When are the focus groups? Focus groups will be held during the last week of July/first week of August (July 29th through August 4th). How long will they last? Participants will need to commit about two hours of their time. This includes time to sign-in, meet the other participants and have the focus group discussion. The focus group discussion will last approximately an hour and a half (90 minutes). Where will these focus groups be held? Focus groups will be held at Affirmations Community Center (290 W. Nine Mile Rd., Ferndale, MI). Why is this important? Your thoughts about tobacco use and quit tobacco messages will help the Michigan Department of Community Health develop quit messages that are tailored to LGBTQ communities. And finally, are there incentives? Yes! All those who participate will receive a $20 gift card. Food will also be provided at each focus group session. If you have any questions, please contact: Lydia Ahlum Hanson, MSW, MPH Health & Wellness Manager Email: [email protected] Direct line: (248) 677-7223 22 | APPENDIX APPENDIX | 21 Log of Focus Groups Conducted Date focus group was conducted CCN Partner Location of focus group Population Number of participants Facilitator 7/30/13 N/A Affirmations Trans-specific 8 Ryan Oliver 8/1/13 N/A Affirmations LGB-specific 8 Lydia Ahlum Hanson 8/22/13 KGLRC KGLRC LGB-specific 7 Jay Maddock 9/11/13 KGLRC KGLRC Woman-specific 1 Kirsten White 9/21/13 N/A Affirmations POC-specific 6 Victor Walker 10/16/13 Jim Toy Community Center Ann Arbor Friends Meeting LGBT 6 D. Alvarez (scheduling conflict with JTCC space) 10/17/13 Jim Toy Community Center Jim Toy Community Center LGBT 3 D. Alvarez 10/1/13 Battle Creek Pride Battle Creek Pride Center LGB-specific 8 Jay Maddock 10/9/13 KGLRC KGLRC LGBT 4 Kirsten White APPENDIX | 23 22 | APPENDIX Participant Demographics Demographic Race * # of Participants % of Total White Black or African American Native Hawaiian or other Pacific Islander American Indian or Alaska Native Asian Middle Eastern/Arab Other Ethnicity 40 8 0 4 2 0 0 80% 16% 0% 8% 4% 0% 0% Hispanic Non-Hispanic Age 5 43 10% 90% 20-29 years 30-39 years 40-49 years 50-59 years 60-69 years Sex/Gender * 16 14 7 8 3 32% 28% 14% 16% 6% Male Female Trans (male to female) Trans (female to male) Intersex Genderqueer Other Sexual Orientation * 25 17 10 1 0 1 2 49% 33% 20% 2% 0% 2% 4% 2 34 6 6 9 5 0 4% 68% 12% 12% 18% 10% 0% Heterosexual Gay/Lesbian Bisexual/Bi-Attractional Pansexual Queer Same Gender Loving Other APPENDIX | 23 24 | APPENDIX Participant Demographics Continued Education Level * Less than HS Diploma High School Diploma General Education Diploma (GED) Vocational Certificate Some College/No Degree Associate’s Degree Bachelor’s Degree Master’s Degree Post-Master’s Degree (Specialist Degree) Doctoral Degree Income 1 3 1 7 16 6 12 8 0 0 2% 6% 2% 14% 31% 12% 24% 16% 0% 0% <$15,000 $15,000-25,000 $25,000-35,000 $35,000-45,000 $45,000-55,000 $55,000-65,000 $65,000-75,000 $75,000-85,000 $85,000-95,000 Employment Status * 4 12 10 6 8 2 0 2 2 9% 26% 21% 13% 17% 4% 0% 4% 4% 25 9 6 10 4 3 2 4 53% 19% 13% 21% 9% 6% 4% 9% Employed Full-Time Employed Part-Time Self-Employed Student On Disability Retired Homemaker Out of work > 1 year * Indicates some participants selected more than one option. 24 | APPENDIX APPENDIX | 25 Focus Group Questions Participant Eligibility Focus group participants will have had some experience with tobacco use. This includes any former or current users of tobacco, as well as casual users of tobacco. Tobacco Use Focus Group Questions Welcome and Introductions- Participants will engage in an icebreaker in which they will give their name and a little known fact about themselves (or some other icebreaker). Confidentiality will also be discussed here. Our discussion tonight will have three parts: First, we’ll discuss your current and past tobacco use.Then, we’ll move on to talk about any experiences you’ve had with quitting tobacco. And lastly, we’ll discuss quit tobacco campaigns and messages – what works and what doesn’t. Objective 1: Behavior and Attitudes Regarding Tobacco Use So to begin, let’s talk about why you started using tobacco. 8:45pm 15 mins - until • Tell us a little about why you first started using tobacco… • What forms of tobacco have you used? o PROBE: Cigarettes, cigars, chewing tobacco, hookah • When are some times when you may be more likely to use tobacco? o What do (or did) you like about using tobacco? o What do (or did) you dislike about it? • In general, how do you feel about your tobacco use habits? Objective 2: Tobacco Use Cessation Let’s move on to talking about quitting…. 15 mins – until 9pm • Have you ever tried quitting? • For those who have tried quitting, what particular methods worked for you? o PROBE: Patches, gums, nasal sprays, etc. o Which methods didn’t work? • What made you think about quitting? What helped you be successful? The Michigan Tobacco Quit Line is 1-800 number that was created to provide support and resources for individuals 26 | APPENDIX APPENDIX | 25 who are thinking about quitting. • Have you ever called (or would you consider calling) the Quit Line? Why or why not? Objective 3: Awareness of Tobacco Use Campaigns and Media Messages Now let’s talk about tobacco prevention and quit campaigns and messages. 15 mins – until 9:15pm • Can you think of some campaigns that focus on reducing tobacco use? If so, could you describe them? o PROBE: TV ads, billboards, posters in bars • What did you like about these campaigns? What didn’t you like about them? Here’s some examples of quit campaign images. (Distribute campaign images). 15 mins – until 9:30pm • Which type of campaign do you think works best for the LGBT community? o PROBE: What messages DO NOT work? There are different levels in society that impact an individual’s decision to use tobacco or not. Individual factors, as well as societal factors affect one’s decision. Here is a diagram that demonstrates this concept: (Distribute diagram to focus group participants) 20 mins – until 9:50pm Policy Smoke-free laws, taxes on tobacco, higher insurance rates “Cigarettes are getting too expensive, so I’m thinking about quitting.” Community Smoke-free homes, schools, workplaces, bars & clubs “Whenever I’m at the bar and want a cigarette, I have to go outside to smoke. My friends won’t join me, so I’m thinking about quitting.” Relationships Family, friends, partners “My best friend makes fun of me for smoking, so I’m thinking about quitting.” Individual Knowledge, beliefs, attitudes “I know that smoking is bad for me, so I’m thinking about quitting.” • When creating quit tobacco campaigns and messages, which levels should be focused on in order to be most effective? o PROBE: Why is that level most effective? Closing- Thanks to participants for time, insights, ideas, and thoughts. 26 | APPENDIX Campaign Images This is from the Truth campaign: This is from the CDC’s campaign, Tips from Former Smokers: APPENDIX | 27 28 | APPENDIX APPENDIX | 27 This is also from the CDC’s campaign, Tips from Former Smokers: “Ellie’s severe asthma attacks were triggered by secondhand smoke at work. She and her partner have to live with its effects forever. If you or someone you know wants free help to quit smoking, call 1-800-QUIT-NOW.” These images are from a LGBT organization that encourages community members to live smoke-free: “I fought hatred, survived coming out, protect myself against HIV, and demand I be treated equal… All so I can die from lung cancer? I quit.”