Fall 2011 - Inspirations
Transcription
Fall 2011 - Inspirations
www.inspirationsnews.com INSPIRATIONS FALL 2011 WINTER 2012 A Snapshot of Our Special Needs Community Vol. 4 No. 1 Follow us on Facebook DundeeWealth Teacher of Inspiration Chrissy Mohammed: “Making a difference one face at a time” “ By Wendy Singer My M.Ed is about seeing a student with special needs first as an individual and second as a student with a learning disability.” Chrissy Mohammed, The Faces along the Road to My Masters of Education. Chrissy Mohammed is an innovative, forward-thinking teacher who can’t imagine doing anything else but teaching. She began her career seven years ago at St. Johns Elementary School in Saint Jean-sur-Richelieu, Riverside School Board. Five years later, she spent one year at St. Mary’s Elementary School. One particularly chaotic day when her students presented challenges beyond her grasp, she came to the realization that she needed and craved to learn more. Chrissy Mohammed and some of her students at St. Johns Elementary School in Saint Jean-sur-Richelieu. INSIDE THIS ISSUE Inspirations Notebook..…………..............Page 2 Caregiver of Inspiration………….............Page 3 St. George’s School Success Story….........Page 4 Wheelchair athlete Chantal Petitclerc…...Page 6 Relationship Development Intervention….Page 7 Learning Potential Program………….......Page 9 Constance Lethbridge…………………......Page 10 Marlene Jennings and her battle ………...Page 11 Centennial College coaches students….....Page 16 Mental Health Resource Centre................Page 17 The Endeavor Program.............................Page 18 A mother and her son………………….......Page 21 Adapted Travel…………..........Pages 25, 26 & 27 (Continued on page 21 ) Using your smartphone, scan this code to head straight to Inspirations’ new website! www.inspirationsnews.com A proud supporter of Inspirations www.cinemasguzzo.com INSPIRATIONS - Fall 2011/Winter 2012 Wendy Singer Inspirations Notebook INSIDE THIS EDITION: I had the privilege of meeting Chantal Petitclerc when she recently addressed EMSB students at Adult Learners Week. During the course of the event, Inspirations editor Mike Cohen and I noticed that the word “inspirations” was repeated over a dozen times. We shared a contribute to a full range of health, education, arts, social welfare and community reinvestment activities with a special focus on supporting at risk youth in Canada. We are pleased to be one of the many community groups and organizations that DundeeWealth sponsors, sharing their dedication to youth and individual opportunity. This group includes the Toronto Children’s Aid Society, the Hot Docs Documentary Film Festival youth education program Docs for Schools and various national and international relief efforts with the Canadian Red Cross. DundeeWealth is committed to helping the communities in which they do business provide young people the freedom and opportunities to experience life fully. By building relationships Chantal Petitclerc is thanked for addressing an English Montreal School Board event by Director of Adult Education and Vocational based on mutual commitServices, Rosario Ortona. ment, they aspire to provide others with the opportunity nod in silent agreement, “Yes indeed, this to succeed. They believe in rising to the expectations of their stakeholders and worknewspaper is aptly named!” ing with them to create healthy communities We’ve had a tremendous year at Inspira- across Canada. tions and enjoyed meeting so many of you at several events catering to the special needs WALK FOR AUTISM: On Father’s Day, community. Our distribution numbers are over 1,500 people participated in Montreal’s on the rise, we introduced a new website, inaugural Walk Now for Autism Speaks at added French language content, and are now Stade Uniprix. Families affected by autism, on Facebook. This fall 2011 edition is jam- friends, teachers, therapists, and corporate packed with inspiring stories and timely partners raised awareness and an impressive information. Don’t miss parent and teacher $185,548. Inspirations was proud to host a Stephanie Winterford’s two outstanding ar- table and support the important work that ticles about her experiences placing her son Autism Speaks Canada is doing. The morning was organized so that kids with autism in school and the search for a diagnosis. could just be kids, and families could enjoy We welcome our advertisers and govern- the community event. Walk Now for Autism ment sponsors, both returning and new, and Speaks is sponsored by Toys “R” Us and urge you to explore the outstanding resourc- Babies “R” Us, and holds events in over 80 cities across North America including five es they have to offer. Canadian cities. NEW SPONSOR: We extend a special welcome to DundeeWealth, sponsor of the Fall 2011 Teacher of Inspiration. Collaboration and innovation are part of the culture of success at DundeeWealth. They actively OUT AND ABOUT: The first annual Montreal Special Needs Fair, held on September 22, 2011 at Ruby Foo’s Hotel, brought the best available special needs resources together under one roof while giving the pub- 2 lic the opportunity to come and learn about a large variety of resources and services. There were many interesting presentations on relevant and timely topics. This was a must-attend event for anyone caring for a disabled person. Inspirations was one of over 30 participating exhibitors who greeted hundreds of fair-goers. For information about upcoming events contact [email protected]. On June 16, 2011, The Eleanor Côté Home proudly opened its doors. This brand-new specialized children’s respite home is located behind the West Montreal Readaptation Centre’s (WMRC) Department of Child and Family Services in Beaconsfield. It is the result of two years of hard work by a devoted community including The Taylor Birks Foundation, corporate donors, WMRC, Centre Marc Vanier and the community at large. The facility will provide much-needed respite to parents of children with an intellectual disability, autism spectrum disorder and/or severe behavioural disorder. It can accommodate up to six children at once, including those with physical disabilities. aspirations), an overview of intellectual and developmental disabilities in Canada, a DVD discussion guide, activities and assignments grouped by subject areas, noting the competencies addressed from the Quebec Education Program. For information or to purchase the toolkit, contact the Centre at 514-848-8619, or email [email protected]. BRIEFLY NOTED: Share Learn Grow is a collaborative venture involving the Giant Steps Resource and Training Centre in Autism, the Sir Wilfrid Laurier School Board (SWLSB) and LEARN. The project aims to share resources, expertise and knowledge developed over the years by these three organizations, as well as promote the use of best practices in their communities. The primary goal of the Task Force Team, established in 2011, is to meet the training needs of parents, teachers, professionals and eventually students, throughout the large SWLSB territory, particular those living far from Laval and have little opportunity to attend training sessions. LEARN will facilitate the accessibility of workshops, conferences, tutorials and consultations through the Internet in the form of webinars, videos, teleconference or other modes. ‘Get Involved in Parasport’ is a new portal that the Canadian Paralympic Committee recently launched on their website (www.paralympic. ca). It helps connect people to parasport (a sport for people with a disability) by highlighting the many ways to participate, from athlete to coach, official, volunteer, or helping to connect someone to parasport. Each role is This EMSB group participated in the Walk for Autism Photo by Lisa Wedmann equally as important and critical to the successful growth of The Centre for the Arts in Human Develop- the parasport movement in Canada. ment has created The disAbility Awareness and Empathy Building Toolkit, for use in Check out the ‘Community News’ section both elementary and high schools. The pur- on the Inspirations website for not-to-bepose of the toolkit is to develop increased missed upcoming events including The empathy and understanding of the lives of Friendship Circle’s Walk4Friendship and people with intellectual and developmental the sixth Annual Autism Awareness Gala, disabilities. The concept emerged from re- both taking place on November 6th, 2011. search in performance ethnography funded by the Social Sciences and Humanities Re- We would like to extend a big ‘THANK search Council of Canada, and a project in YOU’ to Jesse Heffring and the wonderful elementary and high schools. students at Summit School’s T.E.C.C. ProThe toolkit has several components including a copy of the DVD “In Their Own Voices,” (a documentary that warmly presents how a group of performers with intellectual and developmental disabilities view themselves, their interactions, dreams and gram, who distributed this edition of Inspirations to you! If you have comments or tidbits to share, send them to [email protected]. Fall 2011/Winter 2012- INSPIRATIONS 3 Planet Sheldon By Jason Goldsmith INSPIRATIONS Caregiver of Inspiration 2011 Award Ceremony Celebrating Special Education Technician Sherri MacCallum By Wendy Singer I nspirations Newspaper recently honoured the 2011 Caregiver of Inspiration recipient Sherri MacCallum at Lakeside Academy in Lachine of the Lester B. Pearson School Board (LBPSB). with personal interaction, demonstrating the special relationships she has with each student. Vice Principal of Rosemont Technology Centre Danica Lewington presented a beautiful hand-made bench, crafted by her students and which MacCallum sunk into, expressing her gratitude. Special thanks to Jason Goldsmith, founder of the Big Blue Hug autism awareness project, presented a stained glass painting titled “Together.” He explained, “This painting was chosen specifically for you, because what you do is bring people together.” Goldsmith demonstrated his son’s original drawings which form the basis of this painting, showing the evolution of thought and communication. After our editor Mike Cohen described the raison d’être for Inspirations, Principal Michelle Harper took the floor, sharing that MacCallum is Lakeside Academy’s inspiration. While holding back emotions, Harper told MacCallum, “I always think about you as mother earth. We all know that we can go down to Resource any time and you are there with a hug or a smile, embracing everyone. You are the embodiment of generosity and kindness. I believe that you make us all better people, teachers, administrators, commissioners, no matter what our role is, because of who you are and how that rubs off on everyone.” Sherri MacCallum and her adoring students at Lakeside Academy at a ceremony organized by Inspirations. MacCallum’s colleague Sandra Mill-Phillips added: “We work in a most amazing department. The thing that binds it is patience and humour, and it is embodied right here. We’re so happy for you today. You couldn’t be more deserving.” To applause and music, some 20 students slowly filed in, presenting MacCallum with a poster, individually hand-made cards, and an original rap performed by student Wazim Myer. MacCallum accepted each gesture Principal of Rosemont Technology Harry Michalopoulos for sponsoring the award. In my capacity as coordinator of operations for Inspirations, I presented a $50 gift card from Tim Hortons with a message from Regional Marketing Coordinator Patricia César congratulating MacCallum on her achievements and wishing her the best with her ongoing work. LBPSB Regional Director Dave Meloche spoke on behalf of the school board and the director of Complementary Services. “You’ve done so much Sherri,” he said. “You don’t only provide a voice, you allow students to grow their own voices. You are so deserving. Thank you for empowering these students to be so much more than many people thought they could be.” Patrick Whitham, LBPSB Commissioner for Lachine, provided concluding remarks to MacCallum, “Thank you for all the work you do for these students.” MacCallum thanked her colleagues for nominating her and thinking she is deserving, saying, “I’m not nearly as good as I am by myself. It’s working with you guys that makes it easy for me every day.” Submissions are now being accepted for the Caregiver of Inspiration award at [email protected] Inspirations is produced by the Communications and Marketing Division and the Student Services Department of the English Montreal School Board in collaboration, and distributed across the Greater Montreal, Laval-Laurentians and South Shore areas. Editor Mike Cohen Consulting Editors Lew Lewis Julie René de Contret Copy Editors Stuart Nulman Irene Miller Daniel Smajovits Special Advisor Nick Katalifos Principal, Pierre de Coubertin Elementary School Coordinator of Operations Wendy Singer Coordinator of Educational Outreach Linda Mahler Layout & Design Yibing Shen Phone: (514) 483-7200 ext. 7245 Fax: (514) 483-7213 E-mail: [email protected] [email protected] Website: www.inspirationsnews.com 6000 Fielding Ave. Suite 109 Montreal, Quebec, INSPIRATIONS - Fall 2011/Winter 2012 4 St. George’s School of Montreal helps visually handicapped student thrive By Stuart Nulman F or more than 80 years, St. George’s School of Montreal has operated under six main principles. One of those is to “adapt education to the differences of the individual child.” And that principle is best exemplified in the case of Gregory Krychman, a Grade 8 student at St. George’s. Gregory was born visually impaired, and throughout his elementary years, attended schools that were geared specifically towards children with similar challenges. “I called Kathay and she said to me ‘I’ve been waiting to hear back from you since November; where have you been? You come in and we’ll sit down and talk’,” said Nancy. “From that moment on it was ‘yes we’re going to do this, we’ll put him into international French, he can do this, etc.’” “Grade 7 is the perfect time to reintegrate; that’s the time all kids are in a new situation. So instead of being one new person in the class at Grade 6, it was better to go into Grade 7 and work from there,” added Steven. “And the school thought this was going to be great for their school and teachers; the teachers were going to learn so much about how to teach and it was going to be an incredible and enriching experience for them.” From that point, everyone at St. George’s – staff, faculty and students – were ready to meet the challenge and welcome Gregory into Grade 7 and beyond. Also, they made sure that measures would be taken so that he could easily integrate into the high school milieu like any other student. It began just before Gregory started his Grade 7 classes, when Gregory goes over science class notes with teacher StephaLinda Small, who’s in charge of nie Blum (left) and integration aide Michelle Deutsch. student support for Grades 7 and 8, arranged a meeting with Nancy At the end of the 2008-2009 academic year, and Steven, all of his teachers, and Michelle Gregory’s parents – Nancy and Steven KryDeutsch (Gregory’s integration aide), where chman – decided that they wanted to have they talked about him in an open forum, in him integrated into a mainstream school environment. They did the open house circuit, order to get a better understanding about and had him analyzed and tested and were him, what his needs would be and how they eventually given the go ahead to search sev- could help. eral high schools to see which one would give him a solid education and accommo- “At the end of the meeting, all of them said that this experience is going to make them date his special needs as well. better teachers and they look forward to “The list of recommended schools that meeting Gregory and working with him,” we got did not include St. George’s,” said said Nancy. Nancy. “The problem was that many of the listed schools didn’t have the expertise in Starting at a new school and especially first teaching and they were afraid of the pos- year of high school, can be a scary challenge sibility of Gregory getting hurt and were for any student. Luckily for Gregory, his worried how they would handle the physical older sister Hailey was about to start Grade 11 and was more than happy to look out environment; would he be safe there?” for her brother during this transitional year. By May of 2010, after many open houses, “I was overjoyed that Gregory was going to interviews and plenty of back and forth, the same school as me,” she said. “I knew without a school in mind that met their from the get go that he would be comfortsatisfaction, Nancy and Steven decided to able there. I looked out for him everyday contact St. George’s Director of Admissions at school, particularly the first few days. I Kathay Carson, whom they previously met talked to him about who his teachers were, at an open house event at the school’s el- and what activities he was interested in. It was really helpful that I was there for him ementary facility. during his first year of high school. I definitely think he needed it.” Hailey also helped him out with how to do actual homework assignments, book reports, and to write structured English assignments that he wasn’t familiar with beforehand. And now that Hailey’s graduated from St. George’s, she and Gregory still talk about what’s going on at the school, which keeps her up to date about the latest happenings. Gregory goes to school accompanied by Michelle, who is at his side throughout the school day, five days a week. They use a laptop computer that contains soft versions of all the class material (which are given to all the students), which goes along with a software called Jaws 11.0, which gives an audio version of not only the class material, but also any notes that are taken in class. Michelle usually takes the notes, while Gregory listens to what the teacher has to say in class. “It makes him a better listener, and he could benefit more from what’s being taught,” she said. “Sometimes I ask him a quick question to make sure that he is listening.” It is nice to note that Gregory’s classmates are very helpful as well. During a science and technology lab experiment dealing with energy and collision conversions, Gregory’s lab partners explained to him what the experiment was, what has to be done and what his role would be in the experiment. class), the purchase of special volleyballs and basketballs with bells attached to them, so that Gregory can be an active participant in different sports. “And with sports that he wasn’t able to adapt to, the gym teacher enlisted one of the Grade 11 students to train with him, such as jogging, push ups and sit ups, in order to help keep him physically fit so he wasn’t just sitting on the sidelines. There was no such thing as ‘sorry Gregory, you can’t participate’,” said Nancy. Jim Officer, St. George’s Head of School, is proud about how the entire school community has joined together in a group effort to adapt to Gregory’s needs and enable him to become a St. George’s student with confidence and fluidity in an inclusive atmosphere. “It’s a fine example on how we can live with dignity and grace in spite of one’s physical challenges,” he said. And the results of this group effort have been tremendously positive. Gregory has worked hard and succeeded academically. He has made new friends and easily interacts with his classmates (not to mention any faculty or staff whom he passes by in the hallways). Between classes, Michelle and Gregory discuss matters such as homework, assignments, material and equipment requirements for upcoming classes and school trips. “I also teach him how to use his cane more often, Gregory works with classmates on a lab experiment. so that he could eventually get to classes on his own and would give him much more indepen- He is a cast member of the school’s Glee talent show, participates in all the school trips dence as possible,” she said. and volunteers at different community and Other accommodations that St. George’s is charity events that the school is involved offering to ensure Gregory’s smooth transi- with (including the Shrine Bowl football tion into mainstream high school include game, where he gives out candies and toys using special materials like textbooks in to the young patients from the Shriner’s Braille, educational aides like “Math Win- Hospital. As an active member in the Studow” (which has magnetic number and dent Council, he served as the Grade 7 class mathematical symbol tiles in Braille), flex- representative, and was recently elected to ible travel times between classes, and in fulfill the same role this year. gym (which Gregory admits is his favorite (Continued on page 17) Fall 2011/Winter 2012- INSPIRATIONS 5 Don’t be fooled: tutoring does not solve most learning problems a nightmare. Sam needed a lot of support to concentrate on his assignments and he was always finding excuses to avoid work – he had to sharpen his pencil or he needed a snack. While it wasn’t easy, Sam made it through elementary school with tutoring support and a great deal of help from mom. But then Sam started high school. The classes were larger and there were more teachers to cope with. The subject content was more demanding and there were those dreaded mid-year and final exams. The teachers noticed that Sam lacked concentration and would fidget in his seat. He reKaren Foley B, Ed,; M. Ed. quired a lot of supervision Director, Strategic Learning Centre and help to do his homework. Mom studied with ast week, I was again reminded that tutoring him and, despite studying long alone cannot solve learn- and hard for his Christmas exams, ing problems. A mother came Sam still failed them all. What had in to see me about her son, Sam, worked in elementary school was who is now in his first year of not working any more. high school and failing several subjects. Sam’s mom was very Sam’s mother knew her son needworried that Sam would con- ed more help. So she brought him tinue to struggle for the rest of to a qualified psychologist for a comprehensive learning assesshis life. ment. The psychologist discovWhile Sam’s problems in ered that Sam did in fact have an school are not new, only one attentional problem and required of his elementary school teach- medication in order to focus. ers ever expressed any concern about his performance at Further testing by an audiologist school. Unfortunately for Sam, revealed another problem. Denothing was ever done about it. spite having good hearing, Sam was found to have difficulty unOver the years, homework was derstanding lengthy explanations L or directions. Sam was described as an “inefficient listener.” This was likely impacting his ability to learn effectively in the classroom, and was also contributing to reading comprehension problems. What Sam’s mother learned, like many other parents I see, is that tutoring alone cannot solve learning problems. Sam will need programs that help him change the way his brain processes and understands information. He will also require structured remedial programs that will teach him how to understand and retain what he reads. And he will need help filling in any gaps in knowledge he has missed along the way. If your child only needs extra instruction or practice, then tutoring can help. But, if your child has learning or attentional issues, tutoring will only mask the problem. And eventually your child will reach a roadblock, just like Sam did. So what can you do if your child is continually struggling at school? Contact a qualified learning centre that offers a wide range of programs that can address your child’s specific needs. And trust your instincts. If they suggest only tutoring at your first meeting, keep looking until you find a centre that really understands your situation. Your child’s future depends on it. For more information or to set up a free consultation, call Strategic Learning Centre at 514-631-9745 or go to www.strategiclearning.ca Special Needs Datebase T he Inspirations special needs database is available on our website (www. inspirationsnews.com), listing over 400 resources in and around the city of Montreal for children and young adults. The table of contents will guide you through various therapeutic, counselling and support services from recreational activities, tutoring and vocational services, medical clinics, adaptation and social integration to resources for parents and professionals. This database is meant to be used as a guide. The English Montreal School Board recommends that you research these resources to determine if they are appropriate for the care of your child or young adult. If you would like to add your resource to the database, contact us at info@ inspirationsnews.com. “Being disabled should not mean being disqualified from having access to every aspect of life.” --actress Emma Thompson INSPIRATIONS - Fall 2011/Winter 2012 6 Chantal Petitclerc’s race to the top “Determination, attitude and passion” lead to golden career By Wendy Singer C hantal Petitclerc is the most celebrated track athlete in history, having won gold medals at the Olympics, Paralympics, and Commonwealth games. She recently addressed 350 EMSB students at Adult Learners Week – Proud to Learn 2011, sharing her story with great poise, and softness merged with a magnificent force of strength. Chantal Petitclerc is a regular contributor to French Chatelaine magazine. In a recent edition, she shared her thoughts on where she finds her motivation to train. P etitclerc remembers the words of her trainer, “In life, if you don’t know where you are going, there is little chance that you’ll get there.” Chantal’s sports psychologist pushed her to define what she wanted to achieve and how she was going to do it. Petitclerc lost the use of her legs following an accident that occurred in an abandoned barn while on summer vacation. Only 13 years old at the time, she was left with a broken spinal cord, and the realization that her life would never be the same due to this life-altering moment. This future star had no choice but to adapt quickly. “I learned that in a situation where you lose control over everything, the only control you have left is over your attitude and your emotions,” she recalled. “We don’t choose everything that happens to us, but we always choose how we are going to react to it.” When Petitclerc and her family returned from vacation to their home in Saint-Marcdes-Carrières, Québec, her high school had been adapted to be wheelchair friendly, and her community was rallying to help her return to a normal, active life. “Because I had amazing people around me, I was able to choose to not be a victim of this accident,” she declares. It was Petitclerc’s high school physical education teacher Gaston Jacques who had a decisive impact on her life path. Insisting she stay fit, he suggested she take up swimming. Even though she was not an athlete prior to the accident and Jacques had never worked Erratum In the last edition of Inspirations, an article on So You Think You Can Dance Canada Judge JeanMarc Genereux’s story of love,” the term Diagnostic and Statistical Manual (DSM-IV-TR) was incorrectly identified. Chantal’s advice: How to achieve your goals She built a strategy based on the following components: Chantal Petitclerc displays her copy of Inspirations. with someone with a disability, he chose to spend three lunch breaks per week training her. She refers to the expression “fighting fire with fire” when speaking of this period in her life, recounting, “I went from a place of weakness and vulnerability to being stronger and independent in my wheelchair. My life didn’t stop. My life took a new direction with more potential than limits. After those five years I was ready for the next challenge, which was wheelchair racing.” When Petitclerc discovered wheelchair racing, she immediately knew it was her passion. She was not a winner from the start, having come in “dead last” in her first official race. However, she describes her huge goals and dreams, “I knew I wanted to be a wheelchair racer, on a national team and representing my country. I felt in my heart that I’m the best in the world. I just had to go faster.” Faster she went! Petitclerc teamed up with trainer Peter Eriksson, which led to her decorated career, including winning 21 Paralympic medals (14 gold medals) in five Paralympic Games, setting many records, and winning one Olympic gold medal in the 800 meter demonstration sport. She has received numerous recognitions including Chevalier de l’Ordre du Québec, Personality of the Year by La Presse Newspaper, Companion of the Order of Canada, and a star on Canada’s Walk of Fame. She was the first female paralympian to be inducted into Canada’s Sports Hall of Fame. Canada’s golden girl retired from competitive wheelchair racing after the 2008 Beijing Games, but continues to train and participate in road marathons. She enjoys sharing her story as a speaker, contributing to Quebec’s Chatelaine magazine, and hopes to write another book to accompany her first one titled 16 jours à Pékin. Recently married at an intimate ceremony in Cape Cod, she lives in Montreal, is sponsored by Rio Tinto Alcan, and is looking forward to being a part of the Canadian Paralympic Committee. Petitclerc’s story of strength resonates with everyone. She concludes, “No matter who we are, where we come from or what we try to accomplish, one thing we can be certain of is that we all will have to face obstacles and challenges. I believe that facing these challenges in a positive and constructive manner is really what makes the difference.” Is your goal realistic? Be specific, but don’t set the bar too high. Write down a detailed, measurable time line. This is a crucial step in turning dreams into reality. Stick to your timeline. It will motivate you and assure you that you’re on the right track. Circle those important goal dates in red on all of your calendars. Don’t stop there! If some goals will take months or years to achieve, set intermediate benchmarks by dividing each section of your timeline into steps. This facilitates planning and keeps you motivated. Analyze each phase of your timeline to be sure you’ve set realistic goals. Celebrate each achievement. Petitclerc stresses that like in life, sometimes we achieve our goals early, sometimes later. Using this method of planning, there is much less risk of losing your way. For more information visit http:// fr.chatelaine.com/sante/santeforme/article. jsp?content=20100512_152505_7284&PA GE=2 http://www.marathondemontreal.com/en/ faq/faq.html for marathon programmes adapted to 5 km, 10 km, half-marathons and full marathons. Fall 2011/Winter 2012- INSPIRATIONS 7 Relationship Development Intervention® and ASD R elationship Development Intervention (RDI)® is a parent-based program initially developed for children 1 with an autism spectrum disorder (ASD). It is based on behaviour modification through positive reinforcement. RDI was developed by Dr. Steven Gutstein, a psychologist, and 2 his wife, Dr. Rachelle Sheely. The goal is to improve difficulties in core social areas related to the six RDI objectives: emotional referencing, social coordination, declarative language, flexible thinking, relational information processing, foresight and hindsight.3 The approach involves trained consultants, training seminars for parents, support networks, and publications.4 According to Dr. Gutstein, instead of relying on “static intelligence” (one’s ability to memorize facts and retain information), a strength for individuals with ASD, RDI teaches them to rely on their “dynamic intelligence” (the ability to respond to novel situations with flexibility and creativity). RDI takes into account the typical developmental process in which children learn to develop emotional relationships; parents are taught By Tania Piperni M.Ed to motivate and teach skills by focusing on their child’s current developmental level of functioning. 5 RDI aims at helping children to interact positively with other people, regardless of the child’s expressive language ability. According to the program, children will find it easier to learn language and social skills once they learn the value of developing personal relationships. RDI is based on the notion that children with ASD have missed some of the typical social developmental milestones and thus, need to be taught these skills through play and activities directed by parents in a one-to-one situation. Therefore, RDI is typically initiated at home.6 Nick Katalifos and his wife, Mary Gouskos, have been using RDI at home with their nine year old son, Manoli, for one year. They are supervised by their Montreal based consultant, Maria-Niki Bartzakos. They have seen small changes that have had a great impact in how Manoli responds to them and others around him. After Manoli received a diagnosis of autism spectrum disorder at the age of three, the family tried other therapies; but Nick Katalifos, Mary Gouskos and their son Manoli. only since starting RDI has Manoli made great strides in developing relationships. The Katalifos family incorporates the long term goals of therapy into their daily life. Ms. Gouskos explains, “We try to teach Manoli the element of danger through cooking. We also involve him in doing things like laundry and grocery shopping. We want to teach him daily living skills so that he can become more independent.” Families using RDI need to videotape these lessons at home so that their consultant can review and evaluate them in order to offer the family constructive feedback. This is one element of the process that is proving to be challenging for the Katalifos family; according to Ms. Gouskos, “it is difficult to have someone film the session while someone else is intervening with Manoli. We have to do more filming so that we can get additional feedback from Maria-Niki.” The Katalifos family recognizes they still have a long way to go with RDI; as Ms. Gouskos explains, “We are in the infancy of the therapy.” Nevertheless, they believe Manoli is becoming more of a “thinker” and is filling in the gaps in his development. Manoli is learning life lessons and achieving milestones by building upon the strengths and skills he already possesses. Previously, he had limited communication skills; now he is using more declarative language, makes more spontaneous requests, and communicates his needs more readily. Although expressing his emotions is still a challenge, Manoli has become more aware of his surroundings and continues seeking out family members in order to interact together. The Katalifos family is encouraged by Manoli’s progress with RDI which has created opportunities to share new experiences as a family. Ms. Gouskos poignantly sums it up, “Every child has a different journey. This is our journey with Manoli right now and the family is enjoying the quality of the interactions we are sharing.” Tania Piperni is the Autism Spectrum Disorder consultant at the English Montreal School Board. 1 rdiconnect.com 2 autismweb.com 3 autismspeaks.org 4 about.com 5 autismspeaks.org, 6 about.com autismweb.com RDI aims at helping children to interact positively with other people, regardless of the child’s expressive language ability. 8 INSPIRATIONS - Fall 2011/Winter 2012 Inspirational Movies Julie René de Cotret By Andrea Di Tomaso S Les Olympiques spéciaux Saviez-vous qu’il existe des programmes d’activités sportives, diversifiées et adaptées, pour les jeunes ayant une déficience intellectuelle? P endant plusieurs années, nous avons tenté d’intégrer notre garçon dans diverses activités sportives. Il est certain que lorsqu’il était petit, il était en mesure de suivre les autres enfants sans trop de difficultés. Toutefois, avec le temps, l’écart est devenu de plus en plus évident. Les consignes verbales devenaient trop complexes, ce qui entravait son attention et son intérêt. Tout allait trop vite pour lui. Avec le temps, il perdait plaisir à participer aux activités. Nous avons donc décidé de nous tourner vers les Olympiques spéciaux. Cette organisation qui offre des programmes sportifs conçus pour les jeunes et adultes vivant avec une déficience intellectuelle. Grace aux Olympiques spéciaux, les jeunes ont la possibilité de pratiquer un sport ou ils ont l’opportunité d’évoluer selon leurs capacités. Les entraineurs savent adapter leur langage et les exercices afin que tous, sans exception, puissent développer leurs aptitudes sportives en lien avec le sport qu’ils ont choisi. Les jeunes et adultes sont regroupés selon leurs habiletés. Il n’est donc pas rare de voir des jeunes et des adultes dans la même équipe. Cette façon de faire permet aux jeunes de vivre une compétition juste et équitable. Tout en pratiquant leur sport, les jeunes ont la chance de développer des relations interpersonnelles et de vivre un dépassement de soi. The Black Balloon (2008) différents tournois et compétitions aux quatre coins du Québec. Certains ont même l’opportunité d’accéder à des compétions de haut calibre. Ils peuvent vivre comme les autres athlètes, la frénésie des tournois et les remises de médailles tant attendues. Les Olympiques spéciaux sont répartis dans toutes les régions du Québec et offrent programmes d’entraînement et de compétitions dans 14 disciplines sportives officielles; de quoi intéresser nos jeunes. Que ce soit pour les sports d’été ou d’hiver, les Olympiques spéciaux offrent un vaste choix. Cet hiver, notre garçon désire intégrer l’équipe de ski alpin. Il aura également l’occasion de participer à de petites compétitions dans différents monts de ski, un rêve qu’il veut réaliser depuis longtemps. Murderball (2005) Julie René de Cotret est la directrice adjoint des services aux élèves à la Commission scolaire English-Montréal. Simon Birch (1998) Rent it at: Buy it on: T homas (Rhys Wakefield), a typical teenager about to turn 16 has just moved into a new home and started a new school. Thomas is put in-charge of his older autistic brother Charlie (Luke Ford), while their father (Erik Thomson) is occupied with his career in the military and mother (Toni Collette) endures a difficult pregnancy. Thomas, who desperately wants to fit-in at his new school, tries to keep his brother a secret from the world. When one of his classmates, Jackie, (Gemma Ward) accidently meets Charlie, Thomas has to learn to deal with his sometimes not-so-nice feelings about his brother and family. Rent it at: Pour de plus amples information sur les Olympiques spéciaux, je vous invite à consulter le site www.olypiquesspeciaux.qc.ca L’été dernier, mon fils a intégré l’équipe de soccer de notre région. J’ai eu l’occasion d’assister à quelques pratiques. J’étais vraiment surprise de constater le calibre de certains joueurs. Ces jeunes avaient énormément de talent et le calibre de leur jeu était vraiment élevé. Les entraînements sont bien organisés et permettent aux jeunes de développer leur plein potentiel tout en s’amusant. Les parents de leurs côté participent tout en encourageant leur enfant. Ces rencontres hebdomadaires sont également l’occasion pour les parents d’échanger et de partager leurs expériences communes tout en célébrant les exploits sportifs de leur progéniture. Les jeunes ont également la chance de vivre it back, grab some popcorn and lose yourself in these amazing films that feature inspiring and heart-warming characters with special needs or disabilities. All movies can be downloaded through iTunes. T welve-year-old Joe Wentworth’s (Joseph Mazzello) best friend is Simon Birch (Ian Michael Smith) who is much smaller than all the other children in their tiny New England Town. He also believes that God has made him small for a reason, to be a hero. When their friendship is put to the test with a cruel twist of fate, Simon and Joe set out in search of Joe’s real father. Your local video store or library iTunes Your local video store or library. M urderball is the name for the fast-paced and ferocious game of full-contact wheelchair rugby. Leading up to the 2004 Paralympic Games in Athens, this unique documentary focuses on three wheelchair rugby athletes. Mark Zupan, the current captain of Team USA, paralyzed from an almost fatal car accident, Keith Cavill, a former motocross daredevil and Joe Soares, a Paralympic gold medalist who is now coaching the Canadian team after being mysteriously cut by Team USA. We learn how these three men join together through a mutual love of this adrenaline packed and ultra-competitive sport. Watch it on:Netflix Rent it at: Your local video store or library. Buy it on: iTunes The Aviator (2004) L earn about the story of Hollywood movie director, pilot and engineer Howard Hughes (Leonardo Di Caprio) and his life-long struggle with Obsessive Compulsive Disorder, an unknown condition in the early 20th century. Hughes makes breakthroughs in film and commercial air-travel and falls in love with Katharine Hepburn (Cate Blanchett) who is the only person close enough to Hughes to help calm the symptoms of his OCD. This unique insight into mental illness gives us a perspective into how this disease is more than just a need to keep things in order. Rent it at: Buy it on: Your local video store or library. iTunes Fall 2011/Winter 2012- INSPIRATIONS 9 A motion picture event The Mackay Centre School Film Festival T By Wendy Singer he Mackay Centre School in NDG held its first film festival recently and received spectacular reviews. Transforming the gymnasium into a movie theatre set the perfect scene, decorated with stars, glitter, and a good old-fashioned popcorn stand. Staff were donned in black and white, conceived by first grade teacher Jessica Palmer and computer teacher Gaye McConnell after Palmer’s class made the movie School Rules. “Movie-making captured our students’ attention,” Palmer explains. “It was such a success that I thought it would be a great school wide event. Gaye supported me, the teachers jumped in, and it becamewhat it is.” McConnell adds, “I’m blown away by how the festival came together. The committee was amazing. They just ran with it. The kids are having so much fun.” Making movies is a stellar way to learn. Palmer and M c C o n n ell Vice Principal Joe Anne Desire, computer teacher Gaye McConnell, Grade 1 teacher Jessica describe, “It Palmer, Principal Patrizia Ciccarelli and students Jason, Shadow, Jennifer and Shyheim. encompasses (Photo by Debby Colton) everything from language classes, speaking and seeing and Pre-kindergarten to Grade Six students were abuzz with anticipation for their mo- themselves speak, artwork, creating their own stories and working with the program ment in the spotlight. Movie Maker to choose special effects. StuPrincipal Patrizia Cicarelli delivered wel- dents are excited about it and take it very coming remarks which described how seriously.” Mackay strives to empower students by providing opportunities for the children to Captivated by each movie, the students develop self-reliance, academic success and watched attentively and cheered on their self-esteem. Cicarelli explained, “The film- classmates. Ten-year old student Jason De making project has supported the school’s Biasi starred in the movie Happy Country, mission by allowing students to learn in an based on the book Sarah Plain and Tall. His active and independent way and to develop thoughts were clear, “I enjoyed the moviea positive attitude towards themselves and making process, but I am most excited to see myself on screen!” the school community.” Movie-making celebrates the exceptionalities of the student population while introducing new classroom technologies. Each class produced a movie on the topic of their choice, covering themes such as yoga, nursery rhymes, and cooking demonstrations. After months of writing, filming and editing, the day had arrived where the students’ voices would be heard. The concept of a school-wide film fest was Parent Ann Paraskevopoulos’ 13 year old son Philip starred in Aug.Com Rocks. Paraskevopoulos couldn’t say enough about the spirit of Mackay School, “I love the fact that the staff do so much to make the kids feel special. It’s fantastic. The kids are going to the movies, and they’re all stars.” In preparation for the second annual Mackay Film Festival, Palmer and McConnell plan to link the movies with the curriculum, (Continued on page 19) The Learning Potential Program (LPP) Linking movement and learning T he Learning Potential Program (LPP) enhances both movement and learning strategies in all children. It is based on the understanding that it is with the physical body, and not just the mind, that movement and learning take place. The first step of the process is the optimization of the child’s body. The use of a revolutionary technique called Posturology allows us to calibrate (or fine tune) the senses such as touch and vision. This improves how the child perceives himself and his environment. This sets the pace for improved movement and learning efficiency. Step 2 utilizes exercises that target mobility, manual competence and balance. These physical abilities are the key to opening up specific channels in the brain. This leads to an easier, more natural learning experience. This program is intended for any child that can benefit from developing more effective strategies for movement and learning purposes. For more information about the LPP, visit MatBoule.com and click on LPP. INSPIRATIONS - Fall 2011/Winter 2012 10 A smooth transition from pediatrics to adulthood School to Active Life Transition Sector- Constance-Lethbridge Rehabilitation Centre By Wendy Singer W hen teens approach adulthood, career aspirations start to develop, they crave independence, be it living on their own or learning how to drive. For those with disabilities, the dreams may need adjusting in order to be realized. With the guidance of the professionals behind School to Active Life Transition sector, these dreams are being realized. The Constance-Lethbridge Rehabilitation Centre (CLRC) began offering transition services to young adults with spina bifida in 2004 with the assistance of referring establishments. In September 2010, the CLRC formally grouped together services that were being offered to youth between the ages of 16 and 18 years of age in some of the Centre’s programs, resulting in the creation of the School to Active Life Transition sector for clients with spina bifida, cerebral palsy, and juvenile rheumatoid arthritis. “When teens turn 18, they realize they want to be independent,” says Clinical Coordinator of the School to Active Life Transition Sector and Vocational Counselor MarieClaude Saindon. “This can be scary. We reassure them that they are not alone. The services we offer open up a whole new world for them.” The objective is to evaluate the client’s needs as a whole, including daily and leisure activities, studies, work, transportation, home environment, communication. The program prepares clients for adult life, motivating and empowering them to take on adult social roles and encouraging integration into the community, assuring the coordination and access to rehabilitation, health, education, community and social services, and helps therapists in the pediatric and adult milieu to work with this clientele. Saindon’s first step is to meet with the client and their family to create a transition plan. Once needs are assessed, the CLRC identifies partners or resources that will implement each of the plan’s objectives. Should the client require vocational counseling, Saindon will involve the Work Evaluation and Orientation program. She explains, “Many young clients aren’t aware of what they can do. My role is to see what job suits them best. It is important that they choose a career that suits their physical capacity.” Work orientation can cover a range of issues, including office set-up, how to tell an employer that you have a disability, software to use a keyboard with one hand, etc. After her first year of studying commerce at Marianopolis College, 18 year-old Lisa Alinauskas completed an administrative stage with The School to Active Life Transition Sector. This Mackay Centre School alumni learnt how to work with any obstacles due to her cerebral palsy. She explains, “I wasn’t sure what I’d be able to do, if I can sit, stand, do all the tasks. They told me I’m actually pretty efficient. They really helped me see what my strengths and weaknesses are and what I like to do. They have a lot of resources and are very helpful. I think I might be able to get a job soon.” Other arms of the sector include the Driving Evaluation and Vehicle Adaptation program, Technical Aid Services program, Assistive Technology program, Rehabilitation Services. For clients who live outside of the CLRC territory, partnerships are established with the appropriate resources. Referrals are currently made by the Montreal Children’s Hospital, the MAB-Mackay Rehabilitation Centre and the Shriners Hospital for Children. The program welcomes referrals from schools, CSSS and some associations. Clients must be followed by a pediatric health establishment. For information, contact Marie-Claude Saindon, 514-487-1891 #349. The CLRC is a public establishment which offers individualized interdisciplinary rehabilitation services of a specialized or highly specialized nature. These services enable adults with motor and/or speech and language disabilities to improve their quality of life. For information, visit www.constancelethbridge.com. Client Lisa Alinauskas works at her internship. (Photo courtesy of the Constance-Lethbridge Rehabilitation Centre) Fall 2011/Winter 2012- INSPIRATIONS 11 Marlene Jennings and the fight to save her vision A politician like none other I By Jeff Bergman first met Marlene Jennings in the fall of 2007 for an interview to work in her parliamentary office. As of that moment, we established a strong relationship and it has not wavered since. When I found out she had severe eye problems, I was extremely concerned; however, she reassured me that she was going to fight this, and it would not hold her back. It has not. Ms. Jennings was first elected as a Member of Parliament (MP) for the riding of Notre-Dame-deGrâce—Lachine in 1997 and was subsequently elected four more times until her loss in the spring election of 2011. During her accomplished 14 years in elected office, she fought hard for the improvement of her constituents and Montrealers alike, unaware of a personal fight that she was about to encounter. Marlene Jennings In January 2010, Ms. Jennings was first diagnosed with acute degeneration of both retinas. Her first reac- tion was that of disbelief. “I became quite frightened due to the thought of living the rest of my life with low-vision, or worse, blindness,” she expressed to me after hearing the news. Her frst concern - a nightmare scenario for her - was that she will never be able to read again; she has been an avid reader since childhood. After she processed the shocking news, she quickly told herself to calm down and remain positive and that this was not the worst thing she has experienced in life. “As long as I remain in good health, I could continue to live an active, productive, and rich life,” she said. Furthermore, she told me she was fortunate to be diagnosed last year because if this problem occurred 20 years ago, there was not the same technology to combat her eye degeneration. Ms. Jennings underwent a total of seven surgeries to both eyes throughout 2010 and 2011. The final surgical procedure took place over this past summer (a removal of a cataract of the left eye) and it was a resounding success. The vision in that eye has improved from a pre-surgery 20/300 to post-surgery 20/40. As a result, she no longer needs to use a white cane. As of now, her specialist may be able to sufficiently refract both eyes to find a prescription that will improve her eyesight for distance. “As you can well imagine, I’m Vulnerable children and bubble wrap P rotect your child. It is a fundamental instinct for parents. For parents of children with special needs, this instinct is often evoked and heightened as they mostly hear from professionals about all of the challenges and vulnerabilities their children have. Fueling this need to protect are all of the dangers in the world, no matter how small or great, that are reported in the media. The market too is cashing in on these dangers by bombarding us with commercials for antibacterial soaps, nanny cams, and other child safety products. With all of this information regarding the dangers our children are in, parents are reporting feeling peer pressure as well to be constantly protecting, monitoring and help- By Despina Vassiliou, Ph.D. ing their children. In turn, there has been a great deal of recent discussion about overprotecting children, with terms such as “bubble wrapped” children and “helicopter parents” becoming the latest buzz words. fine line between protecting and encouraging the child to try new things, even in the face of potential failure. As parents, how do we decide where that line is? How do we ensure that we do not push or overprotect? On the flip side, more recent breakthroughs in technology have shown us that the brain continues to develop as we grow for at least up until age 25. It is believed that our experiences shape our brain development. In addition, there is irrefutable evidence that self-esteem, and resilience of an individual comes from knowing and experiencing what they can do. Accomplishments make a person feel good. Each accomplishment strengthens the child, especially if their efforts are recognized. Therefore, there is a The truth is that black and white rules do not exist for such matters. The key is to know your child and most importantly for your child to learn to know him or herself. Take an inventory with your child of all the things that they feel that he or she can do or would like to try. Your child may need help and encouragement to see all of their actual and potential strengths. Indeed, there may be some limitations due to his or her needs, but the question then is how do you get around that? What adaptations can be made to help simply delighted as none of the experts had envisioned such an improvement,” she said. Throughout her ordeal, she discovered the many wonderful visual aids, advice, training, and other services that exist for the visually-impaired at Montreal Association of the Blind (MAB)-MacKay Rehabilitation Centre. These services permitted her to continue to work full-time as an MP throughout 2010-2011. Ms. Jennings was able to fulfill all of her responsibilities as an MP and her duties related to the last general election, albeit with some adjustments. I witnessed first-hand throughout the past campaign her perseverance and determination to not let her handicap slow her down. It was impressive to watch. Ms. Jennings advice to anyone who is diagnosed with significant vision problems is not to despair and to immediately ask for information from local healthcare providers about the services available for the visualimpairment in their local community. As for her future, Ms. Jennings accepted an invitation to join the Board of Directors of the MAB-MacKay Rehabilitation Centre in which she looks forward to volunteering with this great organization. As well, we can all hope that Ms. Jennings remains involved in our community, because when she was an MP, she had passion and integrity like no other. your child at least attempt a new activity or endeavor. Most importantly, it is alright to let them fall and fail. Similar to an old proverb, it is better to have tried and failed versus never to have tried at all. Children also learn from mistakes and become stronger just as our immune system strengthens after fighting off an infection. Our role as parents at these times is to be a support for our children, to let them know that everything will be alright and to help them find ways to get through whatever barrier is in front of them. Without that, we risk bubble wrapping our children and encouraging them to be fearful and ill-equipped to face challenges in life. They would become more vulnerable than others. Yes, special needs children have different challenges, but they have great and numerous strengths to share. Allowing them to find what these are, even if they fall and fail sometimes, will make them more resilient and self-sufficient for when we are not there – what a gift! Despina Vassiliou is an EMSB school psychologist and coordinator of the EMSB’s Mental Health Resource Centre (MHRC). 12 INSPIRATIONS - Fall 2011/Winter 2012 The placement process Finding the right school for our child By Stephanie Winterford S ending your child to school or daycare for the first time is a struggle for any parent; when you know – or even suspect – that your child has special needs, this milestone can be frightening. As a special education teacher myself, I had suspected from very early on that my son was autistic, but by age three we had no formal diagnosis. Being new to Montreal, I had no idea where to find the services we needed, how to get a diagnosis, or what kinds of educational programmes were available to kids with needs that were still pending diagnosis. The next two years were turbulent at best, horribly frustrating at worst, but have finally led to a point where Zachary has been diagnosed and is attending a school with an outstanding programme that meets his needs. The following is a summary of the steps we had to take to get there, which I hope can provide some guidance for parents who are getting tangled up in the often daunting process that is finding the right classroom for their child. Upon registering Zach for kindergarten, I told the school board that he had needs, but that we had no diagnosis. Like many par- Stephanie Winterford with her children Sophie and Zachary. ents, I’m sure, I was hesitant to throw him into a special education program without at least trying a mainstream class first. Maybe – just maybe – he would be okay. The principal phoned on Zachary’s second day of school; he wasn’t coping. We contacted Complimentary Services at our school board and met with a consultant and an educator who observed Zachary at an intake meeting and confirmed that his educational needs were, in fact, substantial enough to require an adapted/modified classroom setting. From here, we had to wait to find out which class had room for Zachary. The wait was shorter than I had anticipated and Zach was admitted on a temporary code, which entitled him to services such as speech and occupational therapy at school while a diagnosis was still pending. This code guaranteed Zach’s place at school while we waited for a clinic specializing in the diagnosis of developmental disorders to take us on for assessment. Wait lists are very long, but virtually all of the clinics will provide parents with confirmation that their child is on the list; this generally suffices for the board as far as requirements are concerned for provision of special services. So much of this procedure involves waiting, which is unbearably frustrating – especially with the urgency of early intervention being emphasized from all sides. I cannot stress enough the incredible resources that can be provided by your school board in the mean time. Your board is accessible, qualified, and experienced. Procedures may vary from board to board, but had I known what an incredibly valuable resource we would find (Continued on page 17) Lakeshore Super Sonics Soccer without limitations A s far as we’re concerned, there are no limits when it comes to learning basic soccer skills, getting fit and having fun while discovering a healthy appetite for competition, whether it be during a game of soccer or our fun filled mini skill challenges; which help strengthen the children’s cognitive and gross motor skills. Our ambitions are to fine tune each individual child’s abilities and develop them further so that they may discover their inner athlete and live life to the fullest. Our teams are built on a foundation made of basic soccer skills and a strong sense of pride. Our program is open to all children aged 5 - 15 years who are intellectually challenged, or who suffer from poor social skills or low self-esteem due to behavioral or learning difficulties. Summer outdoor season takes place on Saturday mornings from May through August, and the winter indoor season takes place on Saturday mornings from January through April. The cost for each season is $50, and the ratio of coaches to children varies between 1:2 and 1:4 – depending on the needs of the participants. In conjunction with our commitment to player development, we’ve also developed a Young Coach Mentoring Program; for aspiring young coaches aged between 14 - 20 years. This unique program was developed and is run by the Super Sonics Head Coaches Martin and Barbara Cheetham. We find that an extraordinary relationship between these young coaches and their players quickly develops, which radiates confidence, mutual respect and an equal footing. Coaches and players alike learn valuable life skills sharing an appreciation for the great effort needed to overcome any challenges life has to throw at them. Getting involved with Super Sonics is when the magic begins! Kelly-Anne Soutter – Club Manager www.lakeshoresoccer.ca or [email protected] 514-697-6973 or 514-943-9868 What is school phobia? Fall 2011/Winter 2012- INSPIRATIONS 13 By Lori Rubin *C Once the student is assessed and diagnosed, there are several methods in treating school phobia, such as behavioural strategies (desensitization and gradual exposure to the school environment, relaxation training, social skill training), and family intervention (conflict resolution, marital counselling and family therapy). In certain cases, medication is prescribed to the child (anti-anxiety, anti-depressants). The treatment goal in all therapies that are designed to treat school phobia is to get the student back to school on a regular schedule, as soon as possible. It is known that the longer the child stays away from school, the harder the disorder is to treat. arolyn is an eight-year old shy girl in Grade 2. Whereas most of her classmates enjoy coming to school each day, participating in the lessons and activities that their teacher, Miss Wendy, prepares, and engaging in the many social activities that the school has to offer, Carolyn is usually miserable. Starting midway through kindergarten, Carolyn refused to get on the school bus and still has to be driven to and from school each day. She frequently complains about stomach aches, headaches, and a number of other physical ailments, resulting in the teacher or a “buddy” bringing her to the office in tears, and the secretary calling her mother to come and take her home. Mrs. Morrison, Carolyn’s mother, claims that as soon as her daughter enters the house, she is no longer “ill,” and she happily plays with her two-year old sister, has a snack, or watches her favourite shows on T.V. Mrs. Morrison says she is absolutely baffled by her daughter’s behaviour and is at a loss as to how to change it. Three years ago, Mr. Morrison was diagnosed with leukemia. Although he appears to be “winning the battle,” the long bouts of chemotherapy and blood transfusions, and the intermittent hospital stays have left him fatigued and depressed. Mr. Morrison is an aircraft mechanic, but has not worked since his initial diagnosis. Carolyn’s parents bicker quite often and on at least one occasion, Ms. Morrison took Carolyn and her sister to stay with her grandparents for a few days until things cooled down. Carolyn has School phobia is a serious, but highly treatable condition. always been very attached to her father and she often draws pictures of him at school and is never far from his side when they are home together. She is often reduced to tears when her parents argue, fearing that they will divorce. Carolyn was eventually evaluated in the Child Psychiatry Department of the hospital, and was diagnosed with school phobia (a.k.a. school refusal), an extreme separation anxiety disorder of children. A serious, but highly treatable condition, children who suffer from school phobia often present themselves with physical symptoms, depression, an irrational fear of being in a school-like environment, an intense worry about what is going on at home while they are at school, and feelings of disengagement with their peers. Frequently, as in Carolyn’s case, family issues or an extreme attachment to a parent, play an important role, as do biological predispositions such as timidity, emotional immaturity, and oversensitivity. About one to five percent of all school-aged children have been diagnosed with school phobia, the most common anxiety disorder of that age group. Symptoms often increase when the student returns to school following weekends or vacations. Vocabulary development: it’s all in the words V ocabulary development is an important lifelong process. During the pre-school years, children acquire vocabulary through daily activities and experiences. New words may be learned from songs, storybooks and daily routines, such as bathing and dressing. Shared reading of favourite storybooks is a great way to support word learning at this stage of development. By kindergarten, a child should have solid knowledge of the words that are part of his/her everyday environment. During the early elementary years, a child’s vocabulary expands to include words that matter for school and the classroom (e.g., recess, assembly). From Grade 3 and onward, most new vocabulary is learned through reading. During the high school years, word knowledge becomes specialized for certain subject areas, such as science. Adolescents also become aware that words can have more than one meaning. What is the impact of vocabulary delay on daily functioning? Your child may be unable to follow directions. For example, he may not understand words related to space (under, on) or time (before, after, last). Your child may often use words like thing and stuff, instead of using specific words. She may not be able to answer homework questions because she doesn’t understand what is meant by the words where, why or how, or the terms explain and describe. Carolyn’s parents agreed to go for family counselling and she began weekly appointments with a therapist who was very skilled in this area. She was taught some deep breathing and guided imagery techniques to help her relax. A new member of the family (Pluto – a black Labrador puppy) helped Carolyn to focus her attention on someone other than her father. Within six weeks, Carolyn was back on the school bus and came home from school each day with a big smile on her face. There were no more phone calls home in the middle of the day (except for real illnesses) and with strong support from her family and school, Carolyn finally began to look forward to going to school on Monday mornings! *Carolyn Morrison is a fictional name. Lori Rubin is a behaviour management specialist at the English Montreal School Board. By Susan Waite If your child struggles with vocabulary, ensure exposure to good quality television programs and books. If reading is a challenge, provide audio books and rich learning experiences whenever possible. Walks around the neighbourhood or a trip to the playground, pet store, or museum are ways to offer a fun opportunity to label and discuss objects. Cooking, home repair projects and board games can also provide meaningful opportunities to learn new words and concepts in an enjoyable way. The key is to make word learning meaningful and motivating. Having youngsters memorize dictionary definitions is not recommended because the new words are be- ing learned outside of a meaningful context. In addition, the definitions themselves may be difficult to understand and remember! Pre-teaching of new vocabulary can be helpful. Ask your child’s teacher to inform you about classroom themes so that you can explore the meanings of new vocabulary in advance. This will put your child in a better position to understand and use new vocabulary in the classroom. Keep in mind that many children require plenty of practice to learn new words, so frequent review may be necessary. Susan Waite is a speech-language pathologist at the English Montreal School Board. INSPIRATIONS - Fall 2011/Winter 2012 Nous offrons des ateliers personnalisés pour parents et enseignants qui aideront à : stimuler la circulation d’information, libérer les habiletés innées à apprendre et atteindre un niveau de fonctionnement optimal. We offer customized workshops for parents and teachers that will help: stimulate flow of information, draw out innate ability to learn and realize optimal potential. www. rekinexion .org [email protected] « Merci Lisa, grâce à ton expertise, mes élèves ayant une déficience intellectuelle modérée font de surprenants progrès ! » Marie-Line Hudon Enseignante en adaptation scolaire, Joliette 14 Fall 2011/Winter 2012- INSPIRATIONS 15 ( ' Everything we do at Centennial Academy is designed to help teenagers who are not thriving in school learn to succeed. We recognize that learning is a partnership and that teachers, parents and students can work together to shape a learning environment ""!%# !(!& We emphasize basic literacy and numeracy, teaching all our students learning strategies that serve them in high school and beyond. We provide more time on task for reading, writing, math and science and enrich the core curriculum with athletics and creative arts. Our Student Success Team tracks the performance of each student and provides continuous feedback on a weekly basis. $% & we get schooling done in the classroom and with an appropriate amount of homework. Students need a balanced life and school should be a source of satisfaction, not frustration, for a teenager. With our approach, 98% of students complete the regular Quebec high school curriculum with most going on to CEGEP and university. We have continuous admission throughout the year at all grade levels; we also admit Francophone students who have diagnosed learning disabilities. # (' "## !#" parents have to help a young person persevere and develop the skills to learn effectively. CALL Andrea Burdman at 514-‐486-‐5533 for an appointment with the Head of School, Angela Burgos, to discuss what we can do to help your child thrive at school. A DIFFERENT WAY ' The stark reality is that most young people fail their first semester in CEGEP) level academic program. Generally speaking high school !("## %#$"" """% require for success at college and university. The academic skills """%#" (""!!!%# ! needs to get a DEC done on time and to secure entrance to university. At Centennial College, we see ourselves as coaches, creating good student behaviours and building the self management and study skills that are needed for post-‐secondary success. We emphasize planning, perseverance, and hard work to get successfully through college. For example, we add an additional hour of classroom time to all first semester courses that focuses on learning strategies, problem solving, and self-‐management across all disciplines. We want young people to strive for their personal best& whether that means $% kind of person who lives to learn and to succeed. We provide students with continuous evaluation and feedback and, unlike every other college in Quebec, ##-‐level education. Centennial College offers three DEC programs in Social Sciences, Social Sciences for Commerce, and Creative Arts as well as a one year, Bridge to Science Program $% high school prerequisites while studying core DEC subjects in languages and humanities. We accept applications through the fall and winter. More than 90% of our students finish their DECs and almost all go on to university programs of their choice. We meet in small classes in a friendly college environment where a student is always a name and never just a number. LEARN MORE About a different way to do college at Centennial visit: http://college.centennial.qc.ca/how_we_do_things www.centennial.qc.ca INSPIRATIONS - Fall 2011/Winter 2012 16 Centennial College coaches students to become learners By Morgan Lowrie kids flounder. There has to be a better way. There is a better way.” or many students, the transition from high school to CEGEP is an exciting one, represented by increased personal freedom, new friends and teachers, and the chance to study what interests them. Burgos believes that Centennial, a private 300-student high school and college, represents this better way. The school prides itself on taking students who aren’t thriving elsewhere and giving them the tools and support they need in order to manage Quebec’s rigorous high school and CEGEP curriculum. F Unfortunately, many new CEGEP students struggle: only 40 percent of them graduate on time, and only 50 percent have completed their programs after four years. “Often CEGEPs can be ‘sink or swim’ for many students,” explained Centennial College Director General Angela Burgos. “And they’re letting a lot of really bright They can do this, Burgos explained, by understanding how students learn, and using that knowledge to offer students what they need, including more in-school time, different pedagogical strategies, on-site coaching and support and a lot more practice time and personal attention than other schools. According to Burgos, students who enter CEGEP fail to thrive for three main reasons: lack of perseverance and motivation, poor planning strategy, and the failure to develop effective approaches to learning. “A lot of kids have no idea how to study,” she explained. “You can’t just take a textbook and read it like a novel. But so many kids have been tutored to death or spoon-fed the material, and they’ve never been taught to become learners themselves.” Burgos explained that Centennial addresses these problems with a coaching approach. At the CEGEP level, that includes an extra hour of instruction per course per week, designed as a supervised study hall to teach students how to set aside time to get work done. “Students don’t routinely go home and do an hour of work, so we’re providing that hour for them with a learning coach and a teacher,” Burgos explained. “It helps them wrap their head around what’s expected of them.” Extra time is just one of Centennial’s tools to ensure that their high school and college students get the help they need. Teachers collect data on students every day, making sure they know who is doing well and who is struggling, in order to address problems as they come. “There’s always a reason why someone’s not thriving and it’s not usually because they’re lazy; I haven’t met a lazy kid yet,” Burgos explained. “When kids continually make the same mistakes they need some help and guidance to do better and have an opportunity to be coached without moralizing and judgement.” The school reads all the latest research on learning, to make sure they offer students the best pedagogy possible, and the best way of delivering the material. An example is the school’s Bridge to Science program, offered at the CEGEP level to students who want to study math and science-intensive programs in university, but who never took the advanced high school classes they needed to qualify. The program provides multimedia lectures taped and viewed ahead of time in study groups, so that class time can be spent on what’s important: practice time. That way, by adding a semester of time to CEGEP, students who were eliminated from advanced high school math streams at the age of 15 can now qualify for programs like pure and applied science, engineering or pre-med. “If they want to do it, with the right kind of coaching and a whole lot of practice and feedback, they can do it,” Burgos said. “They can all be superstars, if they put the time in.” 17 Fall 2011/Winter 2012- INSPIRATIONS EMSB Launches Mental Health Resource Centre By Despina Vassiliou, Ph.D. T he Student Services Department of the English Montreal School Board (EMSB) has established a Mental Health Resource Centre (MHRC) in response to school reports of an increasing incidence of mental health issues that also tend to occur at younger ages. The main objective of the MHRC is to better equip schools to promote and improve the mental health of students within the EMSB community, with the secondary goal of enhanced understanding and acceptance of mental health issues. The MHRC is composed of a diverse and experienced team of professionals and specialists (e.g. psychologists, counsellors, consultants, behaviour specialist, etc.) whose role is to disseminate information in a fashion that is tailored to the needs of individual schools and circumstances. In order to do so, the team will gain input from members of the EMSB community and the community at large to help direct the services offered in a more specific and individualized manner. Some of the particular features of the MHRC include the provision of educational opportunities for teachers and professionals such as in-service workshops, consultations with Follow us on the web and Facebook W hile hard copies of Inspirations continue to be popular at schools, CEGEPS, universities community centres, health, and special needs institutions and multiple dropoff points, we are also pleased with the feedback we have received from our website, which was relaunched last spring at www.inspirationsnews.com. It contains all of our online editions, a special needs database, and much more. You will find photos, information on how to advertise, activity listings, news clippings and updates on our Teacher and Caregiver of Inspiration recognition awards. We will post your events and accomplishments in our Community News section and publish special stories between editions. A new Facebook site has also been launched at www. facebook.com/inspirationsnews. This will provide us with an opportunity to post interesting items and events. Please go to our page and “like” us today! ® the MHRC team member(s) and/or a psychiatrist, and a resource information centre with materials related to mental health promotion and interventions for schools. As a result, the parents of our students may expect enhanced support at the school level as they will have access to more information on mental illness. For instance, they will be able to obtain definitions, symptomatology, and general information regarding psychiatric disorders (such as anxiety, depression, eating disorders, etc.) as well as a list of resources from the MHRC. The MHRC is beginning its program with elementary and high schools, and will func- tion with current and new partnerships with local CSSSs (i.e., Health and Social Service Centres), hospitals, and community organizations. The MHRC website should be available for administrators, teachers, professionals and parents by January 2012. The MHRC is there to educate and support our EMSB community to enable us to better address children’s mental health needs. For further information, a member of the MHRC team can be reached via e-mail at: [email protected] Despina Vassiliou, Ph.D. is the coordinator of the MHRC Team. (Continued from page 4) (Continued from page 12) “I hope to be elected student council president one day,” admitted Gregory. in the Sir Wilfrid Laurier School Board, our wait would have been shorter, and far less discouraging. “Usually, we see Grade 7 representatives not as vocal, they want to see how student council works,” said Brian Foote, a Grade 10 and 11 social studies teacher, who also serves as the Student Council’s faculty supervisor. “When Gregory was elected last year, he started right away to contribute regularly to the council. He attends our weekly meetings regularly, is a creative thinker, and adds a positive attitude to the council.” Now in his second year as a St. George’s High School, Gregory has enjoyed the experience and how helpful and supportive the entire school community has been to him. “My fellow students and teachers were a big help,” he says. “They went around talking to me and treated me like any other student. I made a lot of new friends and no one asked me about being visually impaired. They treated me like one of the guys.” “Steven, Hailey and I couldn’t have been happier,” says Nancy. “Not only did Gregory do so well academically, but he did extremely well socially. He made new friends and got involved in student life; it far surpassed our expectations. He worked so hard and was always very motivated. We are indebted to the school and it’s what we wanted for him.” “The thing that we wanted more than anything, was for Gregory to be a regular kid in a school, getting into trouble, taking exams and getting good marks and bad marks be- Our search for a diagnosis of autism When my son was three years old and still not speaking, I had become so distressed by the common reaction “he’ll learn” that I began to take an extremely guarded approach when speaking to other people about Zach. I mentioned the regular things: how tall he was, how he slept through the night. I stopped sharing that he only wore one yellow shirt, day after day; that he screamed at the noise when a car drove by. We finally booked a session with a speech and language pathologist. Astonishingly, Zachary began to speak. Just as importantly, the speech therapist was the first professional to actually say the word “autism” and acknowledge my concerns. You can read extra stories at www.inspirationsnews.com. Stephanie Winterford is a teacher and the mother of Sophie (1) and Zachary (6). She has taught both mainstream and adapted curriculum in Canada and throughout Europe and now lives outside of Montreal with her partner and two children. cause we all live in a regular world,” added Steven. INSPIRATIONS - Fall 2011/Winter 2012 18 West Island’s best kept secret Unique program for special needs adults excels By Daniela Scoppa K nown as the West Island’s “best kept secret,” Place Cartier Adult Education Centre prides itself on providing excellent education in a student-centered and respectful environment for adult learners. Once one enters the bustling Beaconsfield school, they will find the student-centered philosophy adopted by the adult centre not only extends to the students who are working towards their high school diplomas, obtaining necessary pre-requisites or improving on a language but it also extends outside the regular curriculum to the school’s special needs adults. Place Cartier has a very unique approach, the Endeavour Program, a training and social integration program for adults with special needs. What makes it so different is that the special needs adult students share the centre with other students who are completing their adult education courses. Because of this integration, the Endeavour Program is the only one of its kind in the English sector, according to coordinator Ruth Schwarcz. The program allows the special needs adults to participate in all of Place Cartier’s social events, including BBQs, Intercultural Day, Earth Day celebrations, guest speakers and any other activities planned for the general student body. “Having the special needs students at Place Cartier is a won- derful experience,” said Veronica Johnson, former assistant director of the centre. “It makes a big difference for the special needs students because social integration is at a much higher level.” The Endeavour Program began in the mid1980s and has become a big success, with a waiting list in place for students wishing to join the program. With 65 students aged 19 to 40-plus, the program runs from September to June and offers academ- Students generally stay in the Endeavour Program for three to four years and once they leave, most go on to find jobs using the skills they learned during their years spent at the centre. “The students who leave the program after a few years are socially very advanced,” said Schwarcz, who has been working with the Endeavour Program for seven years. “Even the lower functioning students get work placement once they leave.” Schwarcz credits the program’s success with having the special needs adults integrated into the centre’s daily life. “Having the stu- The students in the part-time, evening Endeavour class also make cookies and coffee for the evening adult students because the centre doesn’t have cafeteria service outside regular school hours. All the money collected by the Endeavour students is used as a donation to a scholarship for a graduating Place Cartier student. “These students make this centre a livelier place. They’re a big part of Place Cartier,” said Maclean. “The social integration offered here helps them achieve more in the future and everyone who is a part of this centre benefits from their company.” Daniela Scoppa is the communications officer for the Lester B. Pearson School Board The Dr. John A. Bryant Memorial Award and the Butters Foundation T The Endeavour Program is so successful that it has a waiting list in place for students wishing to join. dents integrated teaches them social skills and what is accepted appropriate behaviour in public,” she said. “It’s quite remarkable to watch the interaction between the special needs students and the adult learners – some of Place Cartier’s ‘toughest’ students melt when they see the Endeavour students.” ic classes (literacy skills, Math, Science, French, computers) and daily living skills classes (community awareness, personal hygiene, cooking, yoga/relaxation, exercise, swimming). As part of the Endeavour curriculum, students are also given work to do around the centre such as clear off tables in the cafeteria, maintain the kitchen, empty recycling bins in each class as well as a number of other tasks. Every Friday, Endeavour students host a communal lunch with one another. They make lunch as a class and then eat together. “They always offer some of their food to the staff,” said Place Cartier Director Marilyn Maclean. “They’re so kind and helpful. It’s such a pleasure to have them around.” he Dr. John A. Bryant Award is an annual bursary program given to graduate students in the Masters of Education in Educational Counselling and Psychology, Inclusive Education Stream at McGill University. It started in the late 1980s to commemorate the work the late doctor did for the Butters Foundation and for the cause of intellectual disability. This project has helped many post-graduates earn advanced degrees in Education and go on to serve intellectually disabled students across the country and beyond. The Butters Foundation is dedicated to the promotion of the legacy of Mrs. Lily Butters. Mrs. Butters supported the families of intellectually disabled children by providing a home for disabled children in need in the Eastern Townships and a lifeline for parents with nowhere else to turn. She welcomed children into her home which grew to a six-building campus along the shores of Lake Memphremagog. The Butters Foundation continues her legacy by providing timely support to families confronted with the challenge of raising a disabled or autistic child. Projects include the Farm Respite Project and Maison Lily Butters. Info: www.buttersfoundation.ca 19 Fall 2011/Winter 2012- INSPIRATIONS He’ll never be a hockey player: a father’s inspiring story T By Robert DiRaddo tion to the group environment a miracle; although I must say that it succeeded primarily because of the instructor and the diverse composition of the group. wenty-five years ago, I went for a curling evening with school buddies at the Montreal Curling Club on Fort Street. Most of us had never curled and it was of course very fun, beer and all. After an evening of trying out something new, we were in the locker room changing and I obnoxiously said out loud, “I wonder why people bother doing this sport week after week – it must get boring!’’ In the locker room was a discreet young man, who answered calmly with humbling words I’ve remembered all my life. “Curling gives a chance to people like me, who are not very athletic, to be good at something.’’ Our son has autism. When David was four he would often bump into the furniture or fall down as he walked around the house. When he started running, he would run across our backyard, awkwardly with his arms glued to his sides. We tried soccer and couldn’t understand why he didn’t run after the ball, preferring to stand in the middle of the field while looking at the other children running by. We tried karate and golf and those also didn’t go over very well. When David was seven, I put up a basketball net and Eureka; he actually was outstanding at free throws and three-pointers. I was encouraged. “Was basketball a sport he could excel at?,” I asked myself as I thought about the famous autistic boy in the U.S. that hit all those three-pointers at the end of the school game. I decided to bring David to see a boys’ basketball game. We lasted five minutes, before a majestic temper tantrum set in. He just couldn’t handle all the sensory stimulation and unpredictability of a team sporting event. I was beginning to accept that sports would not be his thing. I remember when I first learned about his autism, I called a mother in Ottawa whose son with autism had just graduated from (Continued from page 9) giving teachers the opportunity to integrate movie- making into their unit planning. Congratulations to Mackay’s budding writers, directors, producers, set designers and actors for their Oscar-worthy performances. Look out Hollywood! Mackay Centre School is devoted to students who are deaf, have communication disorders or delays and are physically disabled. David can now do backflips, double front flips, hand springs and much more. We decided that, although he was good enough to compete, the benefits of gymnastics as a recreational activity were more than sufficient. In particular since there was so much else to work on. David and Vanessa Crepeau-Turgeon at the gym ( Robert DiRaddo, photo) Carleton. I had a nice chat with her and at the end of the conversation, as we were saying our goodbyes, she said to me twice, “Get a trampoline!’’ I didn’t understand. Years later I would. to run without gluing his arms to his sides. When it was time for Marie-France to move on, she suggested we explore a gymnastics club in the next town, assuring us that David was talented enough to compete. When David was eight he started a habit of doing handstands against the kitchen wall and then proceeded to walk on his hands in the living room. At first I was quite nervous, but my wife was adamant that he could handle it and that it calmed him down. “Sends blood to the brain and washes things up,’’ she used to say. We were starting to consider gymnastics for David. We knew he would still have issues with group lessons, so we started thinking about alternatives. One valuable life lesson we learned is to not rely too much on the establishment in helping our son; it was necessary to be creative and tenacious. The new gym club had a Sunday evening free period that seemed perfect as an introduction to the new environment, as there were few people and I was allowed to come in and supervise him. We tried it out and I’ll never forget the look on David’s face the first time we walked in, when he saw the huge linear trampoline and numerous mats in the gym. He had a great time and I made an appointment to meet the head of the club the following Sunday evening. I met Isabelle the week after and she was very accommodating, arranging for one of her best coaches for my son. She then stopped to evaluate David as he was doing his rolls and said, “He’s good,’’ and then again, “He’s very good!’’ I proceeded to call a young fellow that runs the city’s recreation department and asked him to post a position for a private gymnastics coach. Three days later a young lady in her mid-twenties called me. Marie-France went on to teach my son, every week, for close to a year. She was articulate and spoke in a deliberate tone, which was perfect for David’s receptive language issues. David progressed tremendously, learning forward rolls, backward rolls, cartwheels, handstands and of course she taught him how Vanessa, a university student, started with David the following week. The chemistry was good and she had the skill-sets to manage him as he progressed. She taught him one-on-one for close to two years and subsequently integrated him into her gymnastics group, which consisted of two individuals in their twenties, two 16 year olds, one 14 year old, two 10 year olds and David, who was now 12. We consider the successful transi- I’m writing this on a sunny afternoon, while David is doing private track and field lessons with his coach, Sylvain, a 20-year-old university student. They’re on the track at David’s new high school. Last year I noticed that David could stand long jump close to two metres and I’ve been looking for someone like Sylvain ever since. Through tenacity and good luck, we finally succeeded and David is learning how to run long distances (easily 5km), how to sprint and how to triple jump (he’s now at well over six metres). Maybe one day, he’ll join the track and field club at his new high school. While he’ll never be a hockey player, he’s in better shape than I’ve ever been in and he seems to have found his way, for sports he could call his own. The road was longer and initially had more obstacles than for most other children, but he is now on his way on that journey. We remain confident that he will also find his way in life and I am fully committed to do what I can to help make that happen. Creativity, tenacity and a little luck are the tools that we hope to rely on; and bringing in the right people at the right time. Advertising opportunities Inspirations welcomes your advertisements. By doing so, businesses and individuals will not only support the important service we believe we are providing, but you will also reach potential clientele. Email us at [email protected], call 514-483-7200 ext. 7245 or go online at www.inspirationsnews.com where you can download an advertising contract. INSPIRATIONS - Fall 2011/Winter 2012 20 Inspirational Book Review By Stuart Nulman Bad Animals by Joel Yanofsky (Viking Canada, $34) “on the spectrum,” Jonah is considered as high-functioning, who has problems with communication and social interaction, and is prone to repetitive – or self-stimulatory – behaviour (which is also known as “stims”). While going to school on a regular basis, Jonah goes through an intensive therapy for about 40 hours a week called applied behavioural analysis (ABA). This type of therapy establishes a more structured environment, so that children with autism can learn the same skills that typical children acquire on a more “natural” basis. T owards the end of his recently-published memoir Bad Animals, Montreal journalist, book reviewer and author Joel Yanofsky writes the following passage about how he handles life raising a son with autism: “…a life with autism is a life lived out of proportion, a life lived, at the best of times, slightly askew. The stress involved in going to a family gathering or the corner store or just being out in public can be extraordinary. So, as a consequence, can the feeling of accomplishment that comes when your child does something other children do so matter-of-factly and other parents take so much for granted. There are always a disproportionate number of disappointments to deal with throughout my long day with Jonah, but there are also a disproportionate number of moments when I find myself thinking: This really is a big deal. Matter-of-factness is sweet. I’m only sorry it has taken me so long to realize it.” This year-long journey to self-realization and acceptance of the disorder that Jonah has, and how it has enveloped (and will continue to envelop) Yanofksy and his wife Cynthia, forms the crux of this book. It focuses on that one-year period when Jonah is 10 going on 11. Described as being Although his wife Cynthia is familiar with psychological childhood disorders and how to approach them (she works as an art therapist), it’s the untrained Yanofsky who approaches the concept of how to raise and deal with an autistic child with a great deal of hesitancy and reluctance. And that sense of reluctance is prevalent throughout the book. There are times when he is more than happy to allow Cynthia to assume many of the caretaking responsibilities in order to accommodate Jonah’s needs; that same sense of unloading continues when there are the occasions that he hands Jonah off to his in-laws to babysit him; Cynthia gives him certain books to read that deal with autism that end up unread and piled up besides his side of the bed; and most of all, his major reluctance of trying to write this very book, which gives him a big case of writer’s block and is shunted aside for many years. But as you read the book, you have to give Yanofsky a great deal of credit for two things. First of all, how he diligently delves into his “accidental education” about autism, the symptoms, effects and how it affects both child and parent. Being an avid reader, he buries himself into practically all the major lit- erature dealing with both the medical and human side of autism. This literary self education ranged from the first books that seriously dealt with the subject (Barry Neil Kaufman’s 1976 book Son-Rise and Clara Claiborne Park’s 1982 memoir The Siege, which both are highly recommend by him) to feel good memoirs (such as Rupert Isaacson’s The Horse Boy) to brutally honest and angry first-hand accounts (Susan Rzucildo’s memorable essay about parents and autism called “Welcome to Beirut”). Yanofsky not only has absorbed these written works, but like the book reviewer he is, gives honest and thoughtful mini reviews of them, that double as a valuable resource for those readers of this book who want to read more about the subject. Second, through all the reluctance and selfeducation, Yanofsky gives a great deal of himself to not only understand how and why Jonah has such a complicated relationship with the outside world, but also to create the strong, familial bonds that a father and son should enjoy and cherish. And amazingly, Jonah shares many interests with his dad, such as classic rock music (particularly the Rolling Stones), telling jokes and above all, writing. The latter is exemplified in an illustrated book that Jonah puts together called “Bad Animals,” which interprets how Jonah copes with everyday life through the wildly imaginative animal characters that he has created such as Moe the Yak, Rooney the Camel and the Worst-Monkey-Ever. In fact, Yanofsky was so impressed with Jonah’s version of “Bad Animals,” that he further strengthens the father-son bond by working with him to create a sequel. Of course, like any memoir dealing with the subject of parents and autism, it is filled with plenty of descriptions of the struggles, challenges and difficulties of raising an autistic child. There are the temper tantrums, the examples of baffling behaviour, the quest to find the means to provide a good education (especially the pitched battle the Yanfoskys go through with the administration at Jonah’s school, in order to allow them a shadow to accompany him in grade 5), the countless, cold, harsh advice from countless medical experts and professionals (including one whom Yanofsky facetiously refers to as “The Consultant”), and the sacrifices that go with such an upbringing (in which the Yanofsky’s dining room is converted into Jonah’s own therapy room). But through all the ups and downs, the joys and struggles, Yanofsky chronicles this story with a great deal of heart, honesty … and not to mention healthy doses of his dry, self-deprecating sense of humour. He may admit to being imperfect when it comes to how he should ideally confront and handle the hold that autism has on his son Jonah; however, with a great deal of humour and willingness to educate himself, it has constantly made him into a more understanding and loving father. And after reading this book, it’s an example that a lot of fathers can follow. Fall 2011/Winter 2012- INSPIRATIONS 21 A mother’s tribute Student with Asperger Syndrome set up to succeed parties is essential for compatibility. Incredibly, when bridges were built between the rom this parent’s perspective and from Sir Wilfrid Laurier School Board, the school the viewpoint of both the valleys and principal, this parent, the teachers and the the mountaintops it has become clear school staff, Jeremya was consciously “set up” to succeed. to me that life is all about the climb! F By Lis Taylor This is a story about a 12-year-old boy who desperately wants to fit into a high school environment. Jeremya has Asperger Syndrome. Simply put, his brain is wired to function in a literal and direct manner. He is not wired to understand nuances; he does not function with an analytical mind. His social skills need to be registered in form of data entry; in other words, data must enter his brain in a literal and direct manner, like a computer. Motion to understand began to happen not only for the student, but for all those challenged by his potential. Jeremya’s experience at Mother Teresa Junior High School developed into a success story for reasons far beyond this parent’s control. Teachers and support staff at the high school rose up to the challenge of a rocky road less travelled! It quickly became evident that Jeremya did The necessity of building bridges between not fit into a box; his form was different from the norm, but not less. I liken this appre- hensive student to a wild horse: for when f a c e d with social situations he needs to be reined in and flooded with the Jeremya in his school’s production of the Lion King. data entry nuances. I am sitting in my office with my of appropriate behaviours. He must always son as I write and he has just used an inapbe kept busy. propriate tone. I impatiently say, “Jeremya, how many times have I said to you to not In addition, the challenge is to speak the lan- respond in this manner?” He pondered beguage of factual data, not the language of (Continued on page 23) DundeeWealth Teacher of Inspiration Inspired, in 2009 she began her Masters of Education in Educational Counselling and Psychology at the Inclusive Education Stream at McGill University. “In class I learned new techniques and theories,” she said. “ It made my work so much more relevant because I could walk into my classroom, try what I learned and discuss the results with my professors.” Colleen Lauzier, currently the principal at St. Lawrence School, was vice-principal at St. Johns when she nominated Chrissy for the DundeeWealth Teacher of Inspiration Award. “Chrissy uses creative and engaging methods to ensure that students with special needs receive maximum support and equal learning opportunities,” she wrote. “She is the first one to raise her hand and say, ‘I’ll take them.’ She can be counted on to develop positive parental relationships. The classroom environment is welcoming and students become risk takers because of the inclusive atmosphere.” This Cycle 1 teacher creates a safe, secure atmosphere, and has captured the hearts of her students. The feeling is clearly mutual. When I visited Chrissy’s classroom, they were creating a list of “feel good words” to describe a loved one. Student Jonathan Couture used these words to described his teacher. “She’s enchanting and very patient,” he remarked. Student Charles Sandall added, “Miss Mohammed is a good teacher because she tells me that I have to listen. Sometimes that’s a big help.” Chrissy does not hesitate to introduce tools for better learning and behaviour. Her classroom consists of tables instead of desks and she uses a self-regulating point system for behaviour management. A self-soothing calm down chair, with a box of calm down props is voluntarily used by students when they feel sad, frustrated, or don’t feel right in their heart. Chrissy explains. “When they feel better, we talk about how they felt and what they could do the next time they feel that way.” Speaking highly of her colleagues, Chrissy believes that collaboration and the sharing of ideas is key. “This school is amazing,” she said. “We are known for our teamwork. People complain that our school is too far, but they don’t realize what they get when they get here!” Co-teacher Veronique Lemay shares Chrissy’s enthusiasm. “I asked that my daughter be placed in Chrissy’s class because she has severe anxiety,” she explained. “Chrissy is excellent at adapting for special needs and creating visual cues. She loves the challenge (Continued from page 1) of the special needs kids, she loves their uniqueness.” Chrissy’s interests reach beyond the physical classroom, including LEARN Quebec’s initiative, Building Communities Through Telecollaboration (BCT) - creating communities of teachers using the internet. Her Masters special project focuses on enhancing social and emotional learning through technology, mainly SMART Boards, and she hopes to pursue her Masters in Educational Technology. She affirms, “Technology motivates and engages learners. Students need it for life skills, for their futures.” Colleen is proud of the St. Johns school team. “I could have nominated all the teachers,” she said. “But Chrissy needs to be recognized for the work she does outside of school.” In 2010, Chrissy won The Dr. John A. Bryant Memorial Award (see page 18), given to graduate students pursuing their Masters of Education in Educational Psychology, Inclusive Education Stream at McGill University. The basis of her nomination was her poignant article The Faces along the Road to My Masters of Education, which highlights her unwavering compassion, insight and goals for teaching children with special needs. This teacher loves her job and shares, “There is always something we can learn from a student. I want the students to love school, know what their strengths are and know that they can do anything if they have choices and try their best.” For information about LEARN Quebec or BCT, visit www.learnquebec.ca or bctcollaboration.wikispaces.com. Read Chrissy’s article The Faces along the Road to My Masters of Education online at www.inspirationsnews.com – online extra stories. DundeeWealth is a wholly owned subsidiary of Scotiabank and part of the Bank’s Global Wealth Management division. With a network of over 950 independent financial advisors, they offer innovative investment, insurance and mortgage solutions to Canadians from coast-to-coast-to-coast. Their award winning family of mutual funds and hedge funds, Dynamic Funds®, managed by Goodman & Company, Investment Counsel Ltd., is also available outside of Canada through distribution platforms in Europe and the United States. Submissions are now being accepted for the Caregiver of Inspiration award at [email protected]. INSPIRATIONS - Fall 2011/Winter 2012 A 22 s we grow, the importance of individual difference is in a constant state of flux. There are times in our lives where we strive to fit in, and others where we wish to stand out. The challenge, for those with disabilities, stems from the very reason people choose to stand apart from the crowd. cause it singles us out for the wrong reason. The difficulty with having a disability, particularly a visually identifiable one, is that there is always an attribute differentiating us from the crowd - and not one we’ve chosen ourselves. The question then becomes “how does having a disability affect one’s ability to stand out in a socially desirable way?” To stand out is to be seen; to be seen is to be evaluated; and to be evaluated is to be judged. When people choose to be seen as “other,” it is because they wish to signal something. People usually highlight a particular attribute of social value: athleticism, attractiveness, intelligence, altruism, or other characteristics that can increase one’s social status. This is why we get embarrassed when something unflattering happens to us in public; be- In my experience the answer is a deceptively simple combination of several factors. Firstly, how personable you are. One of the most important skills that anyone can master is how to relate to others. Once mastered many barriers that face most people – disabled or not – simply fall away. Secondly, what you project. Simply put, people will only be as comfortable with you as you are with yourself. We’ve all met people who exude a kind of confidence that is both mag- netic and inspiring, and as a result there is a natural desire to interact with them. This confidence is what attracts people, and it can thrive irrespective of physical appearance. Being happy is attractive, as is being comfortable with yourself as an individual – ironically, they often go hand in hand. Lastly, a healthy sense of understanding that nobody is perfect. Everyone, disabled or otherwise, will run into uninformed people at one point or another. Sometimes people don’t understand and simply don’t know how best to react, and on rare occasions someone will act unintelligently. The thing to remember is that their inappropriate reactions are a reflection of their own personal inadequacies, not a reflection of yours. If they aren’t intentionally offensive, it can be exceptionally empowering to take a moment and explain the situation to them. In essence you are not only improving your own experience but also that of all future disabled individuals that person will meet – talk about paying it forward! ing yourself as you are and deciding that your personal growth will not be stunted by what you assume others will think is perhaps the single most important step you can take. I think the following quote sums up my thoughts on the matter quite concisely: “We ask ourselves ‘Who am I to be brilliant, gorgeous, talented and fabulous?’ Actually, who are you NOT to be?” Jay Jones-Doyle has cerebral palsy. He is pursuing his M. ScA at Concordia’s John Molson School of Business Being different is normal. We are all different, and that’s what makes life fun. Accept- CELEBRATING THE EXCEPTIONAL POWER OF ONE Fall 2011/Winter 2012- INSPIRATIONS 23 Linda Mahler joins Inspirations team By Wendy Singer I nspirations is pleased to announce the addition of long time educator Linda Mahler to our team. “For the past 36 years, I have had the best career I could ever ask for,” she says. “I worked at the EMSB and the former PSBGM with pride and dedication. I loved what I did each and every day. I have had wonderful opportunities teaching at the elementary level as a homeroom teacher, as well as a resource teacher. I have also given numerous workshops through the years for our board on integration, literacy and ethics.” As Linda explains, 30 years ago she was fortunate to be the first special education facilitator for a remarkable pilot project that integrated children with Down Syndrome. The former PSBGM was the first school board in Quebec that welcomed special needs students into the regular classroom. “I am so honoured to have been involved in this noteworthy initiative,” she beams. “Over the years, our educational system has opened its doors and hearts to special needs students who are now successfully integrated into our schools.” “This past June I made the decision to retire, however, I know that I will continue (Continued from page 21) fore he answered and then responded, “Let me see mother, I do believe it has been 11 times.” Language for Jeremya must be direct and literal, followed by options. One evening I told Jeremya that it was time for bed. I then found him standing in front of a clock waiting. “What are you doing?” I asked. “It is not yet 21:00 mother, it is 20:57; you told me to go to bed at 21:00 so I am following your directives and waiting for the big hand to touch the 12.” I received a call years ago from a math teacher who was extremely annoyed at Jeremya. She had asked him how he had figured out a very complex math problem. His answer was, “With a pencil and paper.” The teacher was furious and deducted 50 percent of his grade. “I want to know how you did it!,” She inquired. When I questioned Jeremya on this issue I inquired about the specific steps he had How Concordia and McGill sensitize staff to the needs of the disabled O By Jay Jones-Doyle ne’s comfort level in an environment is directly related to what one gains in that environment - and university is no exception. For individuals with disabilities, the degree to which one feels understood and accepted by faculty and staff can be crucial to successful development in academia. To this end, it is important to evaluate what steps are taken to sensitize staff to the needs of the disabled populations within universities. This article will focus on two Montreal-based universities: Concordia and McGill. to be involved in education. I am looking forward to many new challenges in the future and I am so delighted to be ‘on board’ with Inspirations. I feel privileged to get back to my roots and continue to advocate for special needs kids.” We are thrilled and delighted to welcome Linda to our team as coordinator of educational outreach. taken to solve the problem he responded, “I don’t know mother, the answer was just there in my brain so I wrote it down with a pencil on a piece of paper. I don’t understand why the teacher is so upset.” Life with this young chap became an amazing ride for me when I learned to speak his language. I now accept that his brain is not wired to comprehend mine. I must speak his language if he is to understand my messages. Magic occurs when Jeremya’s mind is harnessed with the literal and direct approach versus the ‘”how and why” do you feel method. Every spring since he was four; my son has performed piano pieces at a yearly concert; and every year during his performance my eyes fill up with tears. “Why are you so sad when I play the piano?” he asked with exasperation. “Oh baby,” I replied, “when I am deeply moved by your playing I feel so proud of you that my heart fills up with joy and it pushes water out of my eyes!” “Oh.” he said. “That’s pretty strange moth- Both universities have an Office for Students with Disabilities (OSD - or “Access Center” at Concordia) dedicated to their special needs populations, and take their own approaches toward enabling employees to best handle diversity. Both universities hold optional workshops / orientation sessions to raise awareness about the special needs requirements of the members of the university. Once a student registers with the OSD, both universities provide letters informing professors that they have a student in their class with special needs. At McGill, this letter will not divulge the nature of the special need – nor will the professor be given specific information even if requested; the aim of this policy is to encourage faculty members to focus on accessibility rather than on the specific nature of the disability. At Concordia, with the student’s permission, a fact/tip sheet specific to the disability will be included to facilitate the professor’s adaptation. In response to an increase of 280 students with disabilities for requesting services in the past year, McGill’s OSD has launched a new initiative around the concept of Universal Design as it applies to learning. The aim of this pilot program is to demonstrate to professors how to structure the learning experience in such a way that it is made accessible to all, regardless of disability. Additionally, McGill is shifting to an inclusive model encouraging the development of resources within faculties; this lessens the growing burden currently shouldered by the OSD but also promotes more integrated practices. The changes will enable professors to better understand the need for a variety of delivery formats, as well as stress the need to structure lectures for maximum retention across the increasing wide spectrum of learning profiles that are present in the modern classroom. Given the staggering increase in the number of McGill students requesting services from the OSD this past year, it is extremely positive to see new strategies being set up to efficiently manage the situation. If this initiative is successful, it may very well lead to a widespread change of how disabled individuals are supported in academia. er, it is anatomically impossible! Anyways, I thought that people only cried when they were hurt or sad!” when bridges are built and a team responds, the output of child development and behaviour modification becomes perpetual. Just today coming home from a rehearsal Jeremya pointed out a woman who was standing at the corner with a friend, laughing and smoking a cigarette. “Mother,” he said, “Smoking is so not cool but look at that woman, smoking makes her happy!” I do not consider Jeremya a contentious boy. I leave my ego at the door and I attempt to, comprehend and enter his world. There is no malice here, simply a brain wired differently. Social opportunities have been presented to Jeremya at school this year primarily because there are teachers, educators and staff who are courageous, open minded and motivated; they are fuelled by kindness and hope. I began to learn acceptance; to allow the beauty of difference to stretch my understanding. I now recognize and look for the brilliance hidden in the quirks; I’ve stopped fighting difference, choosing rather to have fun with it. In the process, I became a creative parent. I have learned to guide my child with social options. He shows me the way by literal and detailed explanations. Jeremya enriches my life with laughter; and with the reflection of endless possibilities. It is my opinion that “We grow because we struggle; we learn and we overcome” --Elise Ellen 24 INSPIRATIONS - Fall 2011/Winter 2012 Emmanuel Dubourg MNA for Viau Parliamentary Assistant to the Minister of Finance (514) 728-2474 Gerry Sklavounos MNA for Laurier-Dorion Chairman of the Committee on Health and Social Services (514) 273-1412 Kathleen Weil MNA for Notre-Dame-de- Grâce Minister of Immigration and Cultural Communities (514) 489-7581 Geoffrey Kelley MNA for Jacques-Cartier Minister Responsible for Aboriginal Affairs (514) 697-7663 Pierre Marsan MNA for Robert-Baldwin Chair of the Committee on Culture and Education (514) 684-9000 Yvon Marcoux Nicole Ménard Lawrence S. Bergman Vice-chair of the Committee on Public Administration Minister of Tourism Minister responsible for the Montérégie region Chairman of the Government Caucus MNA for Vaudreuil (450) 424-6666 MNA for Laporte (450)-672-1885 MNA for D’Arcy McGee (514) 488-7028 “ We are proud to support Inspirations Newspaper, which is fulfilling an important role in our community ” 25 Fall 2011/Winter 2012- INSPIRATIONS Adapted Travel by Mike Cohen Smugglers’ Notch Resort strong on special needs S mugglers’ Notch Resort (www.smuggs. com) is a year round mountain vacation resort, located 30 miles east of the Burlington International Airport and about two hours from Montreal. This piece of paradise offers a complete Mountain Village with convenient restaurants, lounges, entertainment, sport shop, 10 tennis courts, a driving range, multiple and magnificent pools, Rum Runners’ Hideaway reservoir, playgrounds, woodland miniature and disc golf courses, a full service conference and banquet center, a U.S. Post Office, a real estate office, a country store, TREASURES child care center, a welcome and reservation center, and two teen centers. Summer programs go from June through bedroom townhouses with fully-equipped living spaces and kitchens. Lodgings and facilities are all located in the walkabout Village. A free on-demand shuttle service also runs daily throughout the Village. We stayed in a beautiful two bedroom slopeside condominium which can easily accommodate anywhere from seven to 10 people if you use the hideabed and request a cot. Homes are prepared for your arrival with bath towels, linens, blankets and pillows. Your condominium will also have hotel size bars of bath soap, toilet paper, paper towels, dish towels, dish soap, sponges and trash bags. The kitchen in your village home includes pots, pans, plates, glasses, silverware, cooking utensils, a toaster and an auto-drip coffee maker. All homes have a stove, refrigerator, a stacking washer and dryer or access to a washer and dryer in the building. There were four flat screen tv’s in our condo, one with a VCR/DVD combo and a stereo sys- One of the magnificent pools at Smugglers’ Notch. zler and the vice-president of new marketing opportunities, information technology and full owner contracts. Mountain Camp on selected summer weeks includes these activities, plus rock climbing, horseback riding and tandem biking. Howe told me how her start at the resort was interrupted by a previously planned six week trip to Kazakhstan, where she had arranged to adopt a four year old hearing impaired child she named Claire. Howe already had a biological daughter, Lauren, of the same age. In winter, half and full day lessons in skiing and snowboarding are available. The instructors will evaluate each individual’s needs and goals to determine what equipment is necessary. The SNAP maintains an inventory that includes mono-skis, bi-skis and a slider. A special Snowman Camp expands the experience by including dog sledding, cross-country skiing, snowshoeing, ice skating and more. “Claire had been abandoned at birth by her mother and left in an orphanage,” Howe said. “All she could do to communicate was point. I brought her back to Vermont and one of the first things I did was put her on skis at Smugglers.” Through a cochlear implant, Claire gained the ability to perceive sound. She communicates mainly through sign language. “Claire hit the jackpot,” says proud grandfather Stritzler. “She went from an orphanage in Kazakhstan to a beautiful life in Vermont.” tem. Private rooms do not have a kitchen. The Smugglers’ Notch Adaptive Program (SNAP) provides year-round therapeutic recreation to support vacationing guests children and adults - with special needs. The program has been in existence for a number of years, and is all about offering these guests a fun experience in a supportive environment. SENSITIVITY TO SPECIAL NEEDS: In terms of sensitivity and compassion for individuals with special needs, look no further than Lisa Howe. She is the daughter of resort managing director and owner Bill Strit- During the summer, SNAP may include swimming with use of the pools and waterslides, hikes, sing-a-longs, arts and crafts, canoeing and kayaking, nature discovery and use of their climbing wall. A special At Smugglers’ Notch the adaptive program enables the physically handicapped to ski. September. If you are like me and plan ahead, then pencil this place in for next summer and don’t be shy to book your choice dates in the winter. All accommodations are mountainside condominiums ranging from studios to five The winter and summer SNAP are tailored to meet the needs and goals of the individual. Some participants may require two counsellors, while others may be appropriately paired one-on-one. “We also offer an inclusion program, which gives a child with a special need the opportunity to socialize with their peers in our award-winning children’s programs while still maintaining the support of the SNAP counsellor,” says Karen Boushie, head of media relations. “Consultation between the family and the program manager before arrival helps ease a child’s adjustment to the program by outlining what the family can expect from their child’s SNAP experience.” For guests with special access requirements, the reservations staff may direct inquiries to condominium homes that suit individual needs. SNAP web pages are at http://www. smuggs.com/pages/summer/kids/adaptive_ programs.php and http://www.smuggs.com/ pages/winter/kids/adaptive-programs.php. INSPIRATIONS - Fall 2011/Winter 2012 Alisa Anderson is the program manager for SNAP. “The SNAP program has served people with Cerebral Palsy, Autism, developmental disabilities, spinal cord injuries, 26 an adaptive swing safely. He was also able to experience many summer camp activities such as painting, bounce house, hikes, included in the FamilyFest and Adventure Connection Vacation Packages: Discovery Dynamos (for 3-4 year olds), Trail Blazers (5-6), Adventure Rangers (7-10), the Notch Squad (11-15), Mountain Explorers (16-17), and Adult Adventures. Dozens of family activities spanning the ages are also included. Following a mountain brook from high above Smugglers’ Notch Resort Village, the ArborTrek Zip Line Canopy Tour at Smugglers’ descends through mature stands of hemlock, white birch, and sugar maple. The two and a half to three-hour tour includes riding down more than 4,000 feet of zip lines, crossing sky bridges, and rappeling from trees, offering a memorable and thrilling experience for ages eight and older. The tour is included in the Adventure Connections Vacation Package. It just opened last December. Other unique fee-based programs include fishing and paddling adventures, golf instruction, health and wellness offerings, arts and crafts classes, and more. The Alpine slide in Stowe is a major attraction in the spring and summer. visual impairments, seizure disorders, Fragile X, Bi-Polar, Down Syndrome, Diabetes and more,” she noted. Here are a few examples of some success stories. Last winter there was a three year old girl with Down Syndrome who was registered for the learn to ski program. “The only hang-up was when the mom made the reservation months earlier, she informed us that the daughter was still not walking,” Anderson explained. “I assured her that that was fine and we would be able to work with the skills that she does have. Once they arrived at Smugglers’ Notch this young lady had started walking. The next day was her first ski lesson and she skied. We used a piece of adaptive equipment called a snow slider to assist with her balance and strength. By the end of the week she was able to make a few runs in the morning and a few runs in the afternoon, all while waving to everyone she saw. Needless to say her family was thrilled to see their daughter enjoy the sport they love.” This past summer Smuggs had a family visit for the first time from Florida. This family has four sons and their second to oldest has a rare condition called Dravet Syndrome. This child has seizures often, which limits the activities that he can do. With the help of the SNAP program this young man was able to participate on the playground with swimming, and other art projects. THE PROPERTY: Smugglers’ Notch currently has 660 units, with a new phase of 35 on the way. Smugglers’ has four water playgrounds with eight pools and four waterslides. At the Mountainside Pool there is the Giant Rapid River Ride, the Turtle Slide, Little Smugglers’ Lagoon, bathhouse, snack bar, and sun decks. Over at the Courtside Pool, you can enjoy the Flume Waterslide, wading pool, Olympic-sized pool, two 14-person jacuzzi tubs and a bathhouse and snack center. Rum Runners’ Hideaway features 10-acres of natural water, Fidget Ladder, Aqua Jump, fishing, canoe and paddleboat rentals, a picnic pavilion and changing room, with spectacular mountain views. Then there is Notchville Park, a family playground amidst towering maples with the Giant Swing, Raven’s Roost Climbing Tower, three terraced pools with nearly 5,000 square feet of water area, Peregrine’s Picnic Pavilion, sand volleyball court, croquet, tumbling brook, frog pond, and bathhouse. Notchville also features the Twister, a 140 foot body flume waterslide. FALL OPPORTUNITIES: An AutumnFest package offers Smugglers’ exceptional lodging and programming at the lowest rates of the year! The package includes lodging and use of the pool and hot tubs. Guests also have the opportunity to enjoy Smugglers’ woodland miniature golf, shuffleboard, basketball and volleyball. The cost for Autumn Fest for a family of four staying two nights in a two bedroom condominium is $410; other lodging sizes and stays are available. With stays of three nights or more, an additional night is free. WINTER FUN: Ski and snowboard season is from late November until mid-April. Three interconnected mountains comprise northern Vermont’s biggest vertical drop at 2,610 feet. Skiers and snowboarders are welcome on all trails. Morse Mountain, the beginners’ haven, rises directly out of the Resort Village. Sterling Mountain’s terrain appeals especially to intermediates, while Madonna Mountain is the expert skiers’ mountain. The Village and Sterling Ponds provide great trout fishing, and the Lamoille River and Lake Champlain (the “Sixth Great Lake”) are nearby. SNOWFALL: Smugglers Notch averages 316 feet of snow per season (based on a five year average). Snowmaking covers 62 percent of total terrain. The $2.5 million in improvements over the last several years include a 20 million gallon reservoir and additional pumps and guns. More than 100 snow guns are water and energy efficient. Grooming capabilities are enhanced by a winch cat groomer, power tiller, and Zaugg groomer to maintain and contour terrain park features. Each family member is entitled to join in the daily Summer Fun University programs THE VILLAGE OF STOWE: Only Stowe, Vermont combines a classic 200-year-old village with Mt. Mansfield, Vermont’s highest peak. This unique juxtaposition imbues Stowe with a character reminiscent of great European mountain resorts. Just log on to www.gostowe.com, where you will find a chalk full of ideas to enjoy at this year-round vacation spot. You can also call 1-877-GOSTOWE. My family and I recently spent some time in the area. It was in fact our first visit there in a decade. Though Stowe enjoys an international reputation as a winter destination, it is just as exciting in summer. Sparkling streams attract anglers, splashers, and paddlers. Horseback riders gallop through wildflower strewn meadows. Bikers and hikers take to the recreation path and to more challenging mountain trails as well. Stowe’s golf and tennis offer challenges for newcomer and old pro alike or enjoy a glider ride soaring above Stowe’s spectacular terrain. It is never too early to plan ahead for the summer of 2012. If your trip is targeted for late July try and sample The Taste of Stowe Arts Festival (http://craftproducers.com). This is an unusual event, combining a market for handmade crafts, original art, music, and an array of gourmet edible treats. A colossal 100 foot wide tent houses the artists and artisans and other smaller tents host the culinary components. You can also take the easy way up the mountain in the famous Stowe gondola. Spectacular views await you near the peak of Vermont’s highest mountain. From the gondola, access hiking trails or stop for a bite in the lift summit snack bar. This runs daily from mid June until mid-October. Stowe Mountain has an adaptive skiing program in the winter. There is also a wheelchair accessible cabin to ride the Gondola in the summer and winter. The historic Green Mountain Inn (www. greenmountaininn.com) has been offering travellers respite for over 175 years. Located at 18 Main Street, it features 107 accommodations, ranging from traditional guest rooms to luxury suites and townhouses. If you need wheelchair access, it is recommended that you call in advance so that the appropriate room location can be reserved. There is an elevator. Last year a major renovation project completely refurbished nearly a quarter of the historic hotel’s Main Inn room inventory. Twelve of the hotel’s second floor rooms within the property’s central Inn building underwent a substantial revitalization. 27 Fall 2011/Winter 2012- INSPIRATIONS huahua served with a side of quacamole. The barbeque ribs are slow roasted for 12 hours, Memphis style, and slide right off the bone. I combined my order with chicken, garnished in fabulous bbq sauce, along with wild rice and cole slaw. The bar steak, a six ounce filet mignon, is another house favorite. All steaks here are handcarved in the kitchen by Gracies’ chefs. This facility is completely wheelchair accessible, including the outdoor terrace. Reservations are accepted at 802-253-8741. BACK TO BURLINGTON: If you are going to be spending time in Smugglers’ Notch or Stowe, then it makes a lot of sense to book a few nights either before or after that trip in Burlington where great shopping opportunities await you. The indoor pool at the Doubletree Burlington. There was a complete remodeling of bathrooms, air conditioning system improvements, floor plan readjustments to maximize space, the installation of new high grade noise-dampening windows and the addition of new large screen plasma TVs. The Inn is also home to the wonderful Whip Bar and Grill (http://www.greenmountaininn.com/whipbarandgrill.html). This spot provides travellers respite, refreshment, and fine dining in a casual atmosphere. It features an extensive menu full of flavorful food prepared with Vermont products and the freshest ingredients from local farmers. There are fresh homemade breads and incredible desserts. It is open for lunch, dinner and Sunday brunch. The bar offers a great selection of Vermont and New England microbrews on tap and a newly revised wine list sure to tempt occasional wine enthusiasts and connoisseurs alike. I would strongly recommend the grilled swordfish, which cuts like butter. It comes with vegetables, but you can switch this for the mashed potatoes. We shared some garlic shrimp as an appetizer. It came with two sliced baguettes. You can order a half Caesar salad here to save more room for the entrée. There is a kids menu, but the younger ones might want to try the delicious flatbread pizza from the main selections. This is the place for fish – salmon, tilapia, wild striped bass and oven roasted Boston cod. There are also steaks, chicken, burgers and sandwiches. For wheelchair access, you must enter through the main hotel door. DINNER AT GRACIES: Many veteran Stowe vacationers also strongly recommended Gracie’s Restaurant (www.gracies.com) at 18 Edson Hill Road. Owners Paul and Susan Archdeacon are wonderful hosts. Paul, known simply as “Archie,” came here in 1972 from Boston to ski and never left. This is where he met Sue. In 1991 the couple opened the restaurant, naming it after their new shelter rescue dog Gracie, a Yellow Lab Air Dale mix from the South Burlington Humane Society. The name stuck and the restaurant took off. Right from the start Gracie’s was committed to producing as much of their menu as possible themselves. All the breads, rolls and desserts are made on the premises. This led to the introduction of Gracie’s “Doggie Bag.” A penny candy bag painted on the inside with white chocolate, frozen and filled with chocolate mint mousse. When ordered the paper bag is peeled off and the chocolate sack is served over double boil hot fudge. The “Doggie Bag” is garnished with fresh baked sugar cookies cut to look like milk bones. I have not tasted such an exceptional dessert in a long time. The doggie theme carries throughout the menu with all the burgers, made with Boyden Farms all natural ground beef, named after particular breeds. There is some type of canine logic to the names with the Chi- WHERE TO STAY: The Doubletree Hotel Burlington (www.burlington.doubletree. com) is located just off I-89 on Williston Road and near the airport. This is a large and attractive property. All standard guestrooms include the Sweet Dreams bed, coffeemaker, hairdryer, iron and ironing board, refrigerator, easy chair, in-room remote printing, Lodgenet with web access and Game Cube, speakerphone and complimentary wireless high speed internet access. In the suites there is a main bedroom with a king size bed and flat screen TV, separated by a door to spacious living room area featuring a pullout couch, a working desk with two chairs and another flat screen televisions. The bathroom is conveniently accessed from the living room area, which is especially convenient for families with small children who needn’t wake up parents as they charge to use the facilities early in the morning. The hotel has a nice pool, connected to an outdoor patio and an amazing workout gym open 24 hours a day. Its stairmasters have small television monitors attached, with headphones, making one’s workout so much more pleasant. There is an onsite restaurant called Trader Duke’s. The hotel has five handicapped accessible rooms, two with roll-in showers. All of the necessary equipment for the hearing impaired is in place. Both the main and banquet entrances are fully wheelchair accessible, with wide sized elevators to transport those booked on the second floor. DINING OUT: We were thrilled to find an Outback Steakhouse (www.outback.com) only minutes from our hotel at 150 Dorset Street. This has always been one of my fa- vorite chains. Montreal’s West Island had a franchise for about a two year period which we happily frequented. Why it shut down I still do not understand. Well, if you want to experience this spot, best known for grilled steaks, chicken and seafood, then Burlington represents the closest opportunity for Montrealers. The Outback also offers a wide variety of crisp salads and freshly made soups and sides. New creations and grilled classics are made from scratch daily using only the highest quality ingredients. We had a superb meal. I would recommend the clam chowder, the lobster tails and of course the steaks – either the rib eye or Victoria’s filet. The new menu actually has a calorie count in brackets for every single item, which is great for folks who are watching what they eat. This Outback is opened seven days a week. Call 802-862-0003 for reservations. The restaurant is wheelchair accessible. SHOPPING: The Church Street Marketplace pedestrian mall is an amazing place to shop. With over 100 retail shops, restaurants and street vendors, this a popular destination for shopping, dining and people watching. A recipient of the prestigious Great American Main Street Award, the Marketplace is recognized as one of the most successful pedestrian malls in the country. Burlington Town Center is considered Burlington’s premier indoor shopping center, featuring an exciting retail mix including J.Crew, Pottery Barn, Williams-Sonoma, Ann Taylor Loft, Abercrombie & Fitch, Aéropostale, Gap/Gap Kids/Baby Gap, Crabtree & Evelyn and Macy’s Department Store. Then there is University Mall, Vermont’s largest enclosed shopping center, with over 70 shops and services. Here you can choose from a major selection of major department stores like JC Penney, Sears and the BonTon. Within walking distance you’ll find HomeGoods, Hannaford Food & Drug and the Sears Automotive Center. Plus, there is plenty of free parking and wheelchair access! Mike Cohen is the editor of Inspirations. Email him at [email protected], follow him on Twitter @mikecohencsl and log on to his travel advice column at www.sandboxworld.com/travel. Wealth is giving back to the community. At DundeeWealth, we believe wealth is more than individual financial security. It is also about being content and confident within a strong, healthy community that provides families with the freedom and opportunity to experience life to its fullest potential. Congratulations to Chrissy Mohammed, recipient of the 2011 Teacher of Inspiration Award. dundeewealth.com ® Registered trademark of its owner, used under license. 11DWD242_DW_InspSponAd_EN_V2_1.indd 1 9/27/11 5:03:31 PM