ANNUAL REPORT 2011 - National Kidney Foundation of Utah and

Ce
leb
r a ti
ng 2
5 year
s of “M
aking L
ives
Bet
ter
”
A N N U A L R E P O R T 2 011
OUR LEADERSHIP
BOARD OF DIRECTORS
Senator E. J. “Jake” Garn
Chairman of the Board
Over 25 Years of Dedicated Service
Mission
S tat e m e n t
The mission of the
National Kidney Foundation
of Utah & Idaho is to
prevent kidney and
urinary tract diseases,
Senator E. J. “Jake” Garn
Senator Orrin G. Hatch
Governor C. L. “Butch” Otter
David C. Trimble
John B. Robertson
Amanda Dickson
G. Don Gale
Jason Beutler
Michael E. Deputy
D. Jeffrey England
Pamela Grant
Ken Macey
Faye Malnar
Richard R. Nelson
Travis Nokes
Vaughn L. Pulsipher
Doug Wright
MEDICAL ADVISORY BOARD
Harry O. Senekjian, MD, Chairman
Wayne A. Border, MD
Richard C. Cline, MD
Martin C. Gregory, MD
Kalani Raphael, MD
Fuad Shihab, MD
James B. Stinson, MD
Gerald B. Stephanz, MD
improve the health and
well-being of individuals
and families affected by
these diseases, and
increase the availability
of all organs for
transplantation.
NKFU&I Annual Report 2011
Chairman of the Board
Honorary Chairman of the Board Utah
Honorary Chairman of the Board Idaho
President
Treasurer
Chairperson, Nominating Committee
Personnel Advisor
STAFF
Chief Executive Officer
Director of Development
Education & KEEP Director
Director of Patient Services & Programs
Director of Special Events
Kidney Kars Administrator
Accounts Manager
Michael Adcox, MD
Alan G. Avondet, MD
Robert Davidson, MD
Mary Dittrich, MD
Nicholas Hunt, MD
Christopher Keller, MD
Nagraj Narasimhan, MD
Michael Mallea, MD
Fahim Rahim, MD
Naeem Rahim, MD
Amit Sharma, MD
Arnold Silva, MD
Deen Vetterli
Luz Lewis-Perez
Sharon Miller
Ann Madsen
Richard Taylor
Rachel Maloy
Cason Graff
M E S S A G E F R OM
O U R L EAD E R S
2011
25 years of “Making Lives Better”
Over the past 25 years we have witnessed our nation go through many highs and lows. The age
of the internet, 9-11, the .com bubble burst, the housing crisis as well as the development of the cell
phone, I pod, I pads, laptops, Facebook and twitter. It’s a new and ever changing world. Twenty
five years ago in an upstairs bedroom, with a staff of one, an IBM typewriter and carbon papers to
make copies, the National Kidney Foundation of Utah and Idaho was born. In 1987 in that home
office our first fund raising gala was planned which honored Utah’s then US Senator and later US
Astronaut, Jake Garn, for donating a kidney to save the life of his daughter. Deeply committed to
the promotion of organ donation as giving the Gift of Life, Senator Garn is serving his 26th year
as the Chairman of our Board. Today, through committed leadership, generous donors, devoted
board members and hundreds of volunteers, we have evolved into one of the premier charities in the
nation, receiving a multitude of national awards for setting a standard of excellence in Making Lives
Better.
Dave Trimble, President
Each year we help an average of 800 patients with such necessities as rent, insurance, utilities,
food, medications, transportation to and from dialysis, and patient camps and conferences, as
well as educational scholarships to deserving patients to allow them to become self-sufficient and
provide for their families. We educate an average of 6000 public school students each year regarding
the prevention of kidney disease, kidney problems from drug abuse, and the importance of organ
donation. We provide state of the art medical conferences to educate the health care community
regarding earlier diagnosis and better treatment for chronic kidney disease. We conduct yearly
statewide Kidney Early Evaluation Programs for hundreds of those at risk for kidney disease i.e.,
those with a family history of the disease or with high blood pressure or diabetes. Importantly we
support a variety of substantive medical research projects with the ultimate goal of finding a cure for
kidney failure.
Although this report is a celebration of 25 years of extraordinary accomplishments, we still have
a mountain to climb. Because of the ongoing recurrence of the 2 major causes of kidney disease,
diabetes and high blood pressure, the incidence of chronic kidney disease (CKD) continues to rise.
Over 26 million Americans have some stage of CKD, most of whom are unaware of it. Almost
100,000 Americans await a life saving kidney transplant with over 400 waiting in Utah and Idaho
alone. Over 400,000 Americans and over 2600 people in Utah and Idaho depend upon a dialysis
machine 3 days each week to stay alive and struggle with daily challenges that beg for relief. With
often as many as 900 new Utah and Idaho patients being placed on dialysis each year, our mission
to Make Lives Better is our foremost focus and passion.
Deen Vetterli, CEO
This 25 year milestone serves not only to remind us of how far we have come, but of how much
remains to be done. We will not rest on our laurels but will reach toward higher goals with each
New Year. With the continuing support of each of you, our caring friends and volunteers, we are
confident we can meet the challenges needed to ensure the best care for our patients, while working
to achieve our ultimate goal: total eradication of diseases of the kidney.
Gratefully,
Dave Trimble, President
Deen Vetterli, CEO
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PAT I E N T
SE RVICE S
• Life Sustaining Transportation
provides 400,000 Safe Miles
• Over 100,000 Ser vings of Nutritional
Supplements Improve Patient Quality of Life
As gas prices are still at an all time high, Fresenius Medical
Care in Ogden has made it possible for dialysis patients to
receive financial assistance for transportation expense to life
saving dialysis three times a week. Contributions have allowed
NKFU&I to help hundreds of dialysis patients throughout
Utah and Idaho receive safe and reliable transportation to their
dialysis treatments.
This is one of the Foundation’s most important quality of life
programs. With the growth of the number of dialysis patients,
this service greatly improves lab results and feelings of general
energy and well being in the patients who take them. Supplements
include Boost Plus and Liquacel.
Dietician Cheyna Palmer states, “The Liquacel sent to us has
been amazing. One patient has had consistently low albumin
levels of <3.0 and has been averaging 3.8 by only using this
supplement when she comes in for dialysis. She has virtually
no income (like the majority of our patients) and this has been
a huge help to our facility. We greatly appreciate this program.”
• Laptop Computers Help Dialysis Patients
Stay Active and Involved
Jim Fletcher, dialysis patient summarizes the NKFU&I program when he states; “The computer program is the only
way I make it through 4 hours of dialysis. It’s the only way I
stay sane 3 days a week. It’s the only way I stay updated on
the news and it’s the best thing since sliced bread. I’ve done
things for work. I’ve done church lessons and more than you
can imagine. Thank you NKFU&I.”
• Youth Look Forward to Bonding With
Transplant Peers At YTK
NKFU&I’s Youth Transplant Kamp (YTK), benefits young
transplant recipients 8-17 years of age and is open to recipients
throughout the western states. It is the nation’s only week-long
outdoor adventure camp for all organ transplant recipients,
i.e. (kidney, liver, heart, lung, pancreas), allowing them to
form lifetime memories with their peers who have had similar
experiences with organ transplantation.
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PAT I E N T
• Transplant Team Utah Idaho — Wins Big in
Madison
SE RVICE S
• 265 Dialysis And Transplant Patients Enjoy
Family Kidney Kamp
The US Transplant Games sponsored by the National Kidney
Foundation is an Olympic style competition where over 1800
transplant athletes compete for medals in strenuous sports,
proving that organ transplantation offers a complete return to
good health and is indeed “the Gift of Life”.
Dr. Terry Box, a gastroenterologist and liver recipient from Salt
Lake Valley scored four medals. Sally Ogaard, a kidney recipient,
Ashton Arndt, a liver recipient, and Wes Hill, a heart recipient
all from Salt Lake City, earned three medals each.
Athlete, Rick Lily stated, “The Transplant Games are an amazing
event, talking to others about experiences like the ones I have
had, as well as a chance for the transplant recipients to recognize
and thank donor families.”
Team Utah Idaho 2010 members:
Ashton Arndt
Brian Batt
Terry Box
Joe Frazier
Kalli Heslop
Wes Hill
Mikael Lawrence
Rick Lily
Stephen Merrill
Riley Nelson
Sally Ogaard
Whitney Peterson
Mykel Ramsey
Neal Reese
Beckham Scadlock
Benjamin Stevemer
Nathan Winger
The Truck Show Family Kidney Kamp continues to be a
highlight for our Patient Services Program. Over 260 spent
the weekend among the pines at the base of spectacular Mount
Timpanogos. Hospitals were forgotten as kampers participated
in fishing, swimming, hiking, basketball, shuffleboard, miniature
golf, raquetball, arts and crafts, and heard motivational speakers.
Patients and families left the kamp renewed, and better able to
cope with the challenge of living day-to-day with kidney disease.
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PAT I E N T
• Over 200 Promote Donor Awareness
at Easter Event
Over 200 people attended the Annual Donor Awareness Easter
Egg Hunt, which included dialysis patients, organ donors,
transplant recipients and their families. Everyone enjoyed lunch,
a visit from the Easter Bunny, and 1,000 eggs were found by
the children. Prizes were given for Best Easter Bonnet, Craziest
Socks and Cutest Basket.
SE RVICE S
• Medical Alert Jewelr y Made Available
A commitment of NKFU&I is to insure
quality healthcare to patients. NKFU&I
has supplied over 800 pieces of
medical alert jewelry since the inception
of the program. These identification
necklaces and bracelets provide important
information about the patient and can be
life saving in case of an emergency.
• Patient Educational Scholarships
Promote Independence
NKFU&I is dedicated to help fund educational expenses for
deserving patients who wish to complete their higher education
in order to become self sufficient and provide for themselves and
their families.
“Once again your Foundation has made my dream of college
education a reality.”
--Scholarship Recipient
• Utah & Idaho Patients Receive Increased
Emergency Funding
One of the Foundation’s most
important programs is to
provide emergency funding
as a safety net for patients.
This fund is often the only
means of preventing the loss of a place to live or critically
needed utilities. Patients in need of emergency funding received
assistance grants to help
pay for emergencies such as
transportation, medications,
food, rent, utilities and
insurance. In addition, the Foundation continues to supply the
Dialysis Center Emergency Patient Fund in all Utah and Idaho
centers.
NKFU&I Annual Report 2011
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Ryann Proctor receives a National Kidney Foundation of Utah & Idaho
Scholarship Award at Utah Valley University
2010-2011 Scholarship Recipients
Justin Berube
Justin Nelson
Fernando Calderon
Stephanie Hope
Sarah Jackman
Fatima Castillo
Christine Nguyen
Manual Ramirez
Ryann Proctor
Brooke Riley
Alysia McIntosh
EDU C AT ION
P ROG R AMS
• Thousands of Utah & Idaho Students
Educated About Kidney Health
and Organ Donation
• NKFU&I Brings State-of-the-Art Information
to 250 Healthcare Professionals
Education to prevent kidney disease and promote organ donor
awareness is an important part of the mission of NKFU&I.
Over 4,000 students, grades 6-9, participated in the interactive
presentation learning about their kidneys, the benefits of
a healthful lifestyle and diet, and the importance of organ
donation.
The NKFU&I’s 5th Annual Continuing Medical Education
Conference partnered with the Ogden Surgical Medical Society,
with 250 physicians in attendance. This year’s conference
titled, “The Changing Face of American Medicine,” covered a
variety of topics targeting the primary care provider. Visiting
physician, Dr. Andrew Narva, MD, from the National Institute
of Diabetes and Digestive and Kidney Diseases, as well as local
speakers received positive reviews from attendees regarding
state-of-the-art information they received on kidney disease,
early diagnosis and treatment.
“The Kids & Kidneys program educates Jr. High and middle
school students through an informational DVD and a lively
discussion on the importance of taking care of their bodies.”
Julie Hebertson, Teacher – Riverview Jr. High School, Murray,
Utah
Healthcare providers received information about hematuria,
proteinuria, kidney injury, kidneys and drugs, vitamin D and
early referral. A post conference survey by Intermountain Health
Care indicated that 92% of attendees will utilize conference
information to improve diagnosis and treatment in kidney
disease.
“After attending the Continuing Medical
Education course, I will be more proactive
in blood pressure and diabetes care.”
Attending Physician
“92% of conference attendees stated
they will utilize conference information to
improve diagnosis and treatment in kidney
disease.”
Conference Evaluations
2011
KIDNEY LEARNING DAY
SATURDAY
MAY 7, 2011
INTERMOUNTAIN MEDICAL CENTER
DOTY FAMILY EDUCATION CENTER
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E D U C AT I O N
P R O G R A M S
D E VE L OP MENT
P R OG RA MS
• Kidney Early Evaluation Program (KEEP) –
Screens Hundreds of Individuals
in Utah & Idaho
• Fresenius Employees Commit
To Fund Life Saving Patient
Transportation
KEEP, an early detection screening, continues to raise awareness
about kidney disease and to help those at risk prevent or delay
kidney failure. Screenings were conducted in 18 different
locations and screened over 1,600 at-risk individuals. Dr. Allan
J. Collins, MD, Professor of Medicine, University of Minnesota,
has stated that, “KEEP is the very best prevention initiative of
any health care organization in the country.” Since the start of
the program, over 6,100 individuals have benefitted from this
critical prevention program.
For the fifth consecutive year employees for Fresenius Medical
Care in Ogden joined with NKFU&I to fund the Patient Dialysis
Transportation Program. Individual employee donations totaled
over $70,000 funds that provide safe and reliable transportation
for hundreds of patients who need assistance getting to and from
life-saving dialysis.
“I count myself as lucky to have attended a KEEP screening where I
learned I had CKD in time to do something about it. I have greatly
appreciated the help of the National Kidney Foundation in helping
me prevent the need for dialysis.” Andy Eatchel
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D EV E L O P ME NT
P ROG R AMS
• Utah’s Kidney Kars Donation Program
Remains Among the Strongest Car
Donation Programs in the Nation.
Even with the strain on the economy and people driving their old cars longer, the Kidney Kars donation program in Utah is still
recognized among the most successful car donation programs in the nation.
Since 2007 the overall number of donations has declined nationwide, however our innovative marketing and public relation campaigns
have enabled us to see the ongoing success of NKF of Utah & Idaho’s Kidney Kars program benefiting our lifesaving programs.
This year, community partnerships were formed with Jimmer Fredette, local basketball hero who was 2010-2011 NCAA Player of the
Year, now playing for the NBA Sacramento Kings. During the process to recruit Jimmer to our cause, he and his agent at Octagon Sports
Agency agreed to become organ donors.
Kidney Kars continues to enjoy the celebrated community support of Coaches Kyle Whittingham and Bronco Mendenhall, and the
generous time and efforts of our friends at KSL News radio. Very special thanks to Doug Wright for his personal endorsement of our
program, and to Amanda Dickson for her tireless professionalism.
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D EV E L O P ME NT
P ROG R AMS
• 23rd Annual “Rivalr y for Charity”
Golf Tournament
• Utah Govenor Gar y Herbert Opens
Great Salt Lake Truck Show
In what KSL evening news referred to as, “one of the best fund
raising events in the country,” the Utah and BYU football
coaches again united to compete in golf and support programs
of the NKFU&I in the 23rd annual Liberty Mutual Invitational
Golf Tournament. Chairman Vaughn Pulsipher’s leadership and
generosity again ensured the success of the tournament held at
Salt Lake Country Club. BYU coach Bronco Mendenhall stated,
“the last two years we’ve had my players, it’s the most fun golfing
I’ve had in my life. The easy part is we’re doing a good job for
a great cause.” Utah coach Kyle Whittingham’s ‘well recruited
team’ once again took home the Kidney Cup. The Foundation
received major support and sponsorships from generous local
donors raising over $64,000.
Utah Governor Gary Herbert opened the Great Salt Lake Truck
Show with a ringing endorsement of the trucking industry
and the work of the Great Salt Lake Truck Show Committee.
The show offered truckers and companies from coast to coast
an opportunity to show off their state-of-the-art trucks and
equipment. Held at Thanksgiving Point the event included a
car show, entertainment, truck pull, evening light show, trophies
and prizes. The tremendous effort put forth by the Truck Show
Committee resulted in Jeff England, President of Pride Transport
and Chairman of the show presenting a check for $35,000 to the
Foundation. Funds from the event support the annual Truck
Show Family Kidney Kamp for Utah & Idaho kidney patients
and their families, as a much anticipated highlight of our Patient
Services Program.
Legendary Coaches LaVell Edwards, Kyle Whittingham, Ron McBride,
and Bronco Mendenhall join hands in support of NKFU&I
• 250 Walk to Promote Organ Donation
In August 2010 the Foundation held its second kidney walk
and picnic at Wheeler Historic Farm. Two hundred and fifty
family members and friends walked as teams to honor kidney
patients and organ donors. Activities included the painting of
a “kidney van”, a barbeque dinner, and a tour of the Historic
Wheeler Farm.
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Governor Herbert joins Jeff England, Dan England, and David Creer
at the opening of the Truck Show.
M E D I C AL
RE SE AR CH
2010 - 2011 Research Grants
The ultimate goal of the National Kidney Foundation is the total eradication of diseases of the kidney. Support of scientific
research regarding new methods of disease prevention and treatment is one of NKFU&I’s leading priorities.
Li Li, MD
Crucial Role of Angiogenesis in Hemodialysis
Arteriovenous (AV) Graft Stenosis
Kalani Raphael, MD
Effect of Alkali on Renal Fibrosis in
KidneyTransplantation
Magdalena Sikora, MD
Effects of Oral Calcium Carbonate Therapy on
Serum Fibroblast Growth Factor 23 and Markers of
Inflammation and Oxidative Stress Markers in CKD
Patients with High Phosphaturia: A Cross-Over Study
Christof Westenfelder, MD
In Vitro Studies on the Mechanisms
Fuad Shihab, MD
that Mediate the Homing of
Development of Biomarkers for
Infused
Mesenchymal Stem Cells (MSC)
Renal Allograft Fibrosis
to the Acutely Injured Kidney (AKI)
2011 - 2012 Research Grants
The following grants were awarded to research scientists in 2011.
Martin C. Gregor y, MD, PhD
Creation of a Passive-Flow Dialysate Delivery System
Yufeng Huang, MD, PhD
Prorenin Dependent Mechanisms in Diabetic
Nephropathy
Bellamkonda Kishore, MD, PhD, MBA
Development of Novel Therapies for
Dilutional Hyponatremia
US Patent & Trademark Office
Issues Patent for NKFU&I Supported Study
Dr.’s Bellamkonda K. Kishore and Christof
Westenfelder discovered that administration of polyD-glutamic acid, a synthetic peptide, stimulates
robust proliferation of EPO-producing cells in the
kidney. In December 2011 the U.S. Patent and
Trademark Office issued a permanent patent for this
discovery, which was supported in part by a research
grant from the National Kidney Foundation of Utah
& Idaho.
Dr. Bellamkonda K. Kishore and Dr. Christof Westenfelder
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F I N A N C I AL
SUPPORT
STATE ME N T
Year Ended Year Ended
June 30, 2011 June 30, 2010
Private Donations / Memorials
$
32,970
$
23,970
United Way / CHC Campaigns
11,010
11,045
Foundation Grants
---
--Restricted Contributions 179,282 220,108
Special Events
970,833 986,198
Program Services Fees
45,745
56,475
Interest Income / Gain on Investment
16,247
27,724
______________
TOTAL INCOME
$ 1,256,087
$ 1,325,520
______________
PROGRAM SERVICES
Patient Services
$ 474,628
$ 501,475
Medical Research 111,500 131,119
Public Education 209,919 228,215
Professional Education 108,244 109,652
Community Services 104,527 100,417
______________
$ 1,008,818
$ 1,070,878
SUPPORTING SERVICES
Fund Raising
$
Management and General
192,067
47,180
$
170,819
$ 1,248,065
$
1,303,514
45,843
____________
TOTAL EXPENSES
Medical Research
9%
Public Education
19.7%
Professional
Education
8.3%
Community Services
7.4%
Fund Raising
13.4%
Patient Services
39%
NKFU&I Annual Report 2011
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Management In
General
3.2%
page 10
A N N UAL
G IVIN G
Thank you to our Contributors…we couldn’t do it without you!
On behalf of the patients and families who benefit from programs of the National Kidney
Foundation of Utah & Idaho we express our heartfelt thanks. Every effort has been made
to ensure this list is complete and accurate. If your name or gift is listed incorrectly, please
accept our sincere apology.
Platinum Donors
Community Health Charities of Utah
DaVita
Dialysis Research Foundation
Dr. Mary Dittrich
Fresenius Medical Care
George S. and Dolores Dore Eccles
Foundation
Great Salt Lake Truck Show
Nu Skin International
Omnicare, Inc.
Pfizer
Vaughn Pulsipher
The Church of Jesus Christ
of Latter-day Saints
Zions Bank
Liberty Dialysis
Zagg, Inc
Gold Donors
Brooke Allred
American Express Pac Match
American Express Travel Related
Services
Associated Food Stores
C.R. Bard Foundation
Edith Delapp
Jamie Dodge
Fresenius Donors
Fresenius USA, Inc.
Genentech
Gary Hall
Intermountain Donor Services
Loyal Order of Moose
Paul Montgomery
Dr. Nagraj Narasimhan
Eric Nyre
RRJ Consulting
Sober Riders
Swift Charities
Philip & LaRene Taylor Foundation
The University of Utah
Utility Trailer
Juan Villalpando
Dave Zolman
Utah Community Credit Union
Dr. Gerald Stephanz
KSL News Radio
ARUP Blood Services
Brashers Auto Auction
Silver Donors
Bill and Norma Anderson Foundation
David Diamond
Patrick Flynn
Sharon Gorman
Iverson and Associates Inc.
Gordon and Irene Larson
J. Neilson
Keith Proctor
SOS Staffing
Tear-A-Part
James Thorne
David Trimble
US Bank
Wells Fargo
Wayne Wilkens
NKFU&I Annual Report 2011
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D E A R N AT I O N A L K I D N E Y F O U N D AT I O N . . .
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NKFU&I Annual Report 2011
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B.P.
NKFU&I Annual Report 2011
3707 North Canyon Road, Suite 1-D
Provo, Utah 84604
Ph 801-226-5111
Fax 801-226-8278
Toll Free 800-869-5277
www.kidneyut.org