Trisha Meili speaks about Hope and Possibilities
Transcription
Trisha Meili speaks about Hope and Possibilities
RainbowVisions A Quarterly News Magazine for Acquired Brain Injury Professionals, Survivors & Families www.rainbowrehab.com WINTER 2008 Rainbow Rehabilitation Centers, Inc. Volume V No. 1 In this issue ... Clinical News on the Interdisciplinary Team approach: A case study review. Featuring an interview with the Central Park Jogger Trisha Meili speaks about Hope and Possibilities Letter from the Editor ... Dear Readers, As Rainbow celebrates 25 years of serving individuals with brain and spinal cord injuries, I would like to thank you, our readers, for your patronage and many words of encouragement. Through this magazine, the Rainbow executive committee and professional staff have been committed to providing insight into our organization and news about current events, clinical advancements, and industry technologies as well as sharing survivor success stories. We try to keep pace with industry developments and make sure that you, our clients, family members and industry professionals, are informed about our practices and future plans. In this celebration issue of RainbowVisions, we are featuring our interdisciplinary therapy team approach to rehabilitation through four documented case studies. Each story is unique and well illustrates Rainbow’s comprehensive approach to recovery. Because of our company success and growth, we have changed and improved our care delivery systems and invested in professional talent. We want you to know that we are committed to continued excellence and quality care – and we look forward to serving you for many years to come. Table of Contents INDUSTRY NEWS What’s News in the Industry 2 Clinical News – Interdisciplinary therapy case studies 3 Therapy Disciplines – A look at recreational therapy 7 Technology Corner – Susceptibility Weighted Imaging 9 CARF – A measure of quality rehabilitation 13 Industry Conference & Event Calendar 15 TBI SURVIVOR STORIES Survivor Corner – An Interview with Trisha Meili INSIDE RAINBOW Employee of the Season – Spring 2007 10 Rainbow Community Education 16 Rainbow’s approach to nutrition 17 New professional hires 28 The Last Word – Staff of Professionals 29 Yours, Kimberly Paetzold RainbowVisions Editor Editor & designer – Kimberly Paetzold Assistant editor & staff writer – Kirstin Olmstead Staff photographer – Heidi Reyst Please e-mail questions or comments to: [email protected] 1 RainbowVisions 5 www.rainbowrehab.com WIN T E R 2007 / 2008 What’s News in the Industry I 25 Years of Rainbow By Bill Buccalo, President t was at this time in the fall of 1982 and early 1983 that Buzz Wilson completed the incorporation papers for establish innovative programs. Currently your injury, whether in a vehicle or on Rainbow Tree Center, Inc. and we began there is legislation in progress due to the the playing field, should not determine providing services. Buzz’s law partner had wars in Iraq and Afghanistan and significant whether or not you receive rehabilitation won a verdict on behalf of a young man research in the area of TBI will result. or needed life-long support. Cognitive with a brain injury and it was his need America has a tremendous opportunity at rehabilitation needs to be recognized by for care, community reintegration, and hand to learn. health plans. We need to advocate for companionship that prompted Rainbow’s In 1983, Rainbow’s processes were change. founders to begin the adventure. In the totally paper dependent. Today we have Clinical Research needs to be funded. subsequent 25 years, we have seen 200 PCs, PDA’s, cell phones, and the like. Research to date has improved diagnostics incredible change. For Rainbow, the theory Computer based systems have transformed tools such as imaging; we are learning remains the same – bring a team of experts how we do business and improved client more about brain plasticity, concussion and care givers together to assist our clients care. We have much more to do in this management, and decreasing functional in recovery and to live full, productive area. limitations post injury. With more lives. What has changed is what we now Safety and prevention efforts, along with research, the industry can improve the know and the tools that are available to societies’ views, have come a long way in prognosis. assist in recovery. the past 25 years. MADD was established We need to support the BIA and In 1983 CT Scans were just becoming just a couple of years before Rainbow. advocate for continuing education on the available. It took days for the computers In 1984, the federal ‘Age 21’ minimum topic of brain injury via programs such to reconstruct one scan into a low quality drinking age was enacted and states have as AACBIS. We need to look out for our image. Today, we get these incredible enacted tougher drunk driving standards senior population and young children as diagnostic tools in fractions of a second and penalties. falls are one of the highest causes of brain and the picture quality is unparalleled. Helmets for bicyclists and sports injury. In the early years, Rainbow performed have become part of our culture. Other Rainbow is very proud of our first 25 limited modification to our homes. About advances include automobile safety; years. Today, we have employees who half our clients shared bedrooms and worker safety initiatives, sports concussion were part of the very first group hired in homes had little accessibility features. guidelines; advances in EMS and ER 1983 and we have many others who have Today, our team involves architects to protocols and pharmacology, and the list dedicated their careers to the field. We are focus on accessibility features, ADA could go on. proud of the work we have done with our compliant bathrooms, and other beneficial The advancements made in the last 25 clients, the relationships we have built, modifications. years and their impact on people with and the opportunities we have created for New laws have changed both business brain injury, public perception, and the the future. For the next 25 years, Rainbow and mindsets. The Americans with field are incredible. Yet, at the same time is dedicated to providing the best care Disabilities Act was signed into law in there is so much more that we need to do. for our clients and pushing for greater 1990, establishing rights for people with We need to establish standardized opportunities for all of those living with disabilities and changing attitudes. In outcome measures and benchmarks on an the consequences of brain injury. We are 1996, the TBI Act was instituted becoming industry-wide basis to clearly demonstrate hopeful. We have much to accomplish. the first piece of federal legislation to the value of rehabilitation for those we Thank you for all your support over the expand the studies of brain injury and to serve. TBI is an epidemic. The source of years. RainbowVisions 2 Clinical News CASE STUDIES ON THE ... Interdisciplinary Team Approach Kimberly Paetzold, Editor W By hat is an interdisciplinary team approach to recovery? An interdisciplinary therapy team approach to rehabilitation draws from two or more therapy disciplines – integrating them together in the pursuit of recovery. This approach develops a greater understanding of an individual’s complex and wideranging issues following a traumatic brain injury, and more importantly, the therapy results are greater than the sum of each discipline implemented individually. her to try Rainbow’s “interdisciplinary team approach” to therapy. As it turned To illustrate the advantages of this approach, we out, receiving therapy with a professional team focused on meeting her have documented four Rainbow client rehabilitation unique needs was exactly what Betty needed. stories focused on each person’s therapy. The stories Betty did not have a brain injury, but she did have serious orthopedic are unique, but the results of combined therapies and issues, severe pain and medical conditions, including colitis. Marianne Knox, an integrated team approach yielded superior results in the admission coordinator assigned to Betty’s case, met with Betty and her each of the following cases. husband, Ralph. Marianne evaluated Betty and produced a plan of care based on her assessment, medical records and Betty’s physician prescription. After selecting Rainbow’s NeuroRehab Campus as the appropriate treatment center Case Study #1 - Betty Korte February 2007 – Betty is an independent, vibrant 73-year-old, married to Ralph, the man she loves and her second husband of 35 years. She has three children, three grandchildren and three great grandchildren. But on February 11, her life changed drastically when she and residential home, her therapy team was assigned – physical therapists, “After receiving treatment for pain, Betty felt better and could participate in therapy. When clients have varied needs, the interdisciplinary team approach becomes invaluable.” Gaurav, Rainbow OT was in a car accident that left her injured with multiple fractures. After receiving acute care, Betty transferred to 3 an inpatient rehabilitation center close to home. After occupational therapists, a Rainbow case manager and nurses. weeks of therapy, she was having a very difficult time For someone who is neurologically intact and has not incurred a brain getting out of bed, was wheelchair bound and unable injury, the treatment process can be less complex. Eliminating the need for to progress in physical therapy sessions. She felt ill and adaptive cognitive strategies allowed Betty’s therapy team to strategically had completely lost her self-confidence. Her lack of focus on improving her range of motion, overall strength, stability and success caused an extreme amount of anxiety and her balance. This became Betty’s daily rehabilitation. first response to therapy quickly became, “I can’t do As Betty worked with her therapists, she grew to trust them, and her that.” confidence increased, translating into a more positive outlook. There was After two months of unsuccessful treatment, Betty’s regular communication between her therapists on a daily basis and formal case manager felt she needed a change. She wanted monthly team meetings. When Betty was tired or in pain, her therapists would RainbowVisions www.rainbowrehab.com WIN T E R 2007 / 2008 communicate that information, and Betty would receive pain management following the therapy session. If necessary, therapies would be rescheduled later in the day, enabling her to rest. “We cater to our clients’ needs or issues,” stated Gaurav Rainbow, a occupational therapist. “If Betty needed a break or pain management, such as a hot pack, ice pack or pain medication, that need was communicated to nursing. After receiving treatment for pain, Betty felt better and could participate in therapy. When clients have varied needs, the interdisciplinary team approach becomes invaluable.” Within a short period of time, Betty grew stronger and was able to handle back-to-back therapy sessions. On September 27, only four months after admitting to Rainbow, Betty was ready to go home. Unfortunately, she had to wait until her house renovations were complete, but when her home received a passing grade, her discharge was quick. When Betty arrived at Rainbow’s NeuroRehab Campus, she needed assistance to stand and was unable to ambulate. When she left, she was able to walk with a cane and could handle almost all of her daily living tasks independently. The Rainbow team is always grateful to see Betty Korte clients progress and return home. Betty is well on her way to complete independence, and more importantly, she is happy with her outcome. Case Study #2 - Tom Chadwick March 1987 – Thirteen-year-old Tom Chadwick stepped out of his school bus and was struck by a car. He incurred a severe traumatic brain injury and initially did not have funding for rehabilitation services. It would be years before funding became available, and during that time, Tom lived with his parents. Continued on page 11 Betty Korte is a vibrant woman in her 70s. Her hobbies include working in her yard and frequenting garage sales and flea markets. Betty has three children, three grandchildren, and three great grandchildren. She and her husband, Ralph, have been married for over 35 years. Betty feels that she progressed very well at Rainbow and is delighted to be home again following her four months of therapy. She thanks her treatment team for helping her through the rehabilitation process. “I would recommend this place to anyone,” she says of Rainbow’s NeuroRehab Campus. “The staff will help you in any way. They are very kind to their patients. I’m very appreciative to have come out on my own two feet.” RainbowVisions 4 Traumatic Brain Injury Survivor Corner The answer to that question is yes, but they didn’t push in an obnoxious way because that would have turned me off. My therapists AN INTERVIEW WITH were as invested in my recovery Trisha Meili B Interview by as I was. As a team, we set goals together. The best example of that Kimberly Paetzold, Editor was when the head of the physical therapy department encouraged me to join a running group. I joined one Saturday, and I remember a man orn in 1960, Trisha Meili was raised in a wheelchair as well as a young in Paramus, New Jersey and Pittsburgh, Pennsylvania. She completed boy with spina bifida. I thought, “If her undergraduate degree at Wellesley they can do this with their disabilities College and graduate studies at Yale then so can I.” I wasn’t in great shape University. After graduation, she went at that time, but running gave me on to work as an associate at Salomon Trisha miraculously survived the brutal the sense that I could conquer the world. It Brothers, a Wall Street investment bank. beating and eventually returned to her filled me with such hope – like I was taking On April 19, 1989, shortly after 9 p.m., previous life and work while remaining something back. In hindsight, I realize that Trisha went for a run in New York’s out of the public eye for fourteen years. my physical therapist knew just how much Central Park. During her run, she was In 2003 Trisha told her story in a book to push. violently assaulted. Hours later, two titled “I AM THE CENTRAL PARK JOGGER: men found her near death after being A Story of Hope and Possibility” (a New You worked very hard in therapy. At one raped and beaten—she was in a coma, York Times best seller) and began a career point, you attended 35 one-hour group had a fierce blow to the head, severe as an inspirational speaker. sessions of academics to bring you up to college reading level. Could you tell us hypothermia and 75 percent blood loss. The initial prognosis was that she would Thank you for interviewing with how you motivated yourself for this? die or remain in a permanent coma. RainbowVisions. You have made a I believe a couple of things were going remarkable recovery and tried to turn on. Without being aware of it, I only what was a horrible experience into focused on the present. In rehabilitation, something positive. You write in your concentration matters. I focused on the book that the attack ultimately has given here and now very intently and worked as you a richer and more meaningful life. hard as I could to make my reality the best Could you expand on this thought? it could be. Almost instinctively, I realized I have a much greater appreciation that wallowing in the past or wishing for for what I do have – for life and all that a different future was not going to help. surrounds me. To me, that increased Working in the present and focusing awareness, appreciation and attitude make my energy eventually led to gradual life so much richer. My work is more improvements, however small. Those gains satisfying than the job I had before my motivated me to keep pushing forward. injury. Improvement is a powerful reinforcement. I wasn’t sure what I would 5 9 RainbowVisions RainbowVisions During your inpatient residential be doing in the future, but I had a sense rehabilitation, one of your doctors said that I would be OK. That thought brought that the brain isn’t always automatically a sense of peace. It also helped that I self-healing, but that it sometimes needs was getting tremendously encouraging a push. Did you feel pushed by your messages from around the world. People rehabilitation team? wanted me to get better – I can’t tell www.rainbowrehab.com WIN T E R 2007 / 2008 you how powerful that was. Maybe unconsciously, that caused me to work harder. You’ve always had a love for running. At some point during your recovery, your attitude about that activity changed. Could you tell our readers about this? I think the irony of my story is that my running compulsion nearly killed me, but it also helped save my life because I was in such good physical shape. One major change since my accident is that I no longer feel that I’ve wasted a day if I do not run. I still exercise a fair amount, several times a week, but in moderation. Running has become a vehicle for feeling proud of what I can do – but it’s no longer a crutch. Could you tell us what type of deficits you had to work around and what compensatory strategies you implemented? I used a planner more and tried to follow established routines. If I stayed organized, I functioned better. When I was rushed or disorganized, the results were rarely optimal. I also got plenty of sleep. Lack of adequate rest still affects my mental abilities and that, combined with a healthy diet and regular exercise, helped quite a bit. Your employer (Salomon Brothers) kept Pictured above: In June 2004, Trisha Meili made a run through the streets of New York City carrying the Olympic torch. She was selected to represent New York in the Olympic Torch Relay. your job open and actually created a position better suited to your abilities To be wanted and welcomed back gave got more involved in different financial and stage of recovery. Could you tell us me a sense of belonging and provided transactions and with clients. Later, I was about your job, post-injury, and how you a tremendous psychological boost. It able to travel and worked to a position that gradually took on more responsibilities? also increased my desire to work hard in was fairly close to what I had been doing My employer played a vital role in my rehabilitation so I could be professionally pre-injury. recovery. A job is part of an individual’s effective and productive. My experience was similar to Bob identity. When that is suddenly gone, it When I returned to work, at first I didn’t Woodruff’s current situation – Bob is back becomes much harder to regain confidence have any client interaction, which was a at ABC but not employed in the exact same and abilities. My employer stood by me large component of what I did pre-injury. position. (Pre-injury, Bob Woodruff was from the beginning and let me know there Instead, I performed a fair amount of the “World News Tonight” anchor and was a place for me at work. Early on, they administrative tasks. For example, I set up now he is a journalist.) I’m sure that being told my father, “Trisha will have a job a system to make sure that our corporate employed as a journalist with ABC is aiding whenever she gets out of the hospital.” expenses were recovered. Gradually, I in his recovery. Continued on page 19 RainbowVisions 6 TBI Therapy Disciplines A LOOK AT Recreational Therapy By R Elizabeth Stahl, Recreational Therapist ecreational therapists provide treatment to individuals with disabilities or n o i t a e r c e R illnesses through recreational activities. Using a variety of techniques including arts and crafts, animals, sports, games and community outings, they treat and help maintain the physical, mental and emotional well-being of their clients. These activities help reduce depression, stress and anxiety. They help individuals recover basic motor functioning and reasoning abilities; they also build confidence and social skills. In addition, recreational therapists help Recreational therapists help integrate individuals with disabilities into the community by teaching them how to use community integrate individuals with disabilities into resources and recreational activities. the community by teaching them how to use community resources and recreational activities. 7 Recreational therapists treat a wide Rainbow Recreational Groups unable to walk on land can often walk variety of individuals including those with: Fitness groups help clients to lose in the water. This can enhance both their • Substance abuse issues weight, increase muscle flexibility, build physical and psychological condition. • Psychiatric issues strength and endurance, and increase Arts and crafts groups help clients feel a • Mental retardation (MR/DD) cardiovascular health. Physical exercise sense of accomplishment and satisfaction, • Physical disabilities can also improve one’s self-concept. and can also be used as a fun way to • Traumatic brain injury Overall fitness increases a person’s general improve fine motor skills and expressive health and releases endorphins that functioning. Individuals are exposed to At Rainbow, each treatment facility is enhance mood. Fitness groups are often many adaptable items such as fingertip assigned a recreational therapist (RT) who an invaluable resource to help clients in brushes, which require a downward push leads leisure skills and leisure education wheelchairs combat the negative effects of with the hand instead of squeezing. groups. These groups help clients explore a sedentary lifestyle. Group games and activity nights activities that build skill sets and promote Aquatic groups help clients facilitate a provide clients with a chance to interact a healthy lifestyle. Many individuals with healthy lifestyle in many of the same ways with peers and encourage appropriate traumatic brain injuries cannot participate that physical fitness groups do, but aquatic social interactions. Playing games with in activities in the same way they did before exercises can also increase balance and others at different skill levels gradually their accident. It is especially important coordination. Water can also be used as teaches appropriate behaviors. Games can that they are able to participate in a leisure resistance to increase muscle strength and include cards, board games or physical group so they can discover new activities endurance. For many clients, the water competitions. Social interaction has also or relearn hobbies they enjoyed before they can be a freeing environment, making it been found to play a large role in an were injured. possible for them to do things that they individual’s emotional well-being and helps cannot do on land. Even clients who are lower levels of depression. RainbowVisions www.rainbowrehab.com WIN T E R Community skills groups take 2007 / 2008 About the Author... clients into the community, providing opportunities for interaction with the important to individuals who have a Elizabeth Stahl, traumatic brain injury because their Education: Elizabeth Stahl has a Bachelor of Science degree decision-making skills that guide in recreational therapy from the University of Toledo in Ohio. general public. Community skills are appropriate social interactions have often been impaired. In order to rejoin the Recreational Therapist Experience/Specialty: Elizabeth interned with Rainbow at community, many clients need to acquire the Ypsilanti Treatment Center under recreational therapist basic social skills taught in this group. The Nancy Miller and took the position of activities coordinator skills they learn are vital to their success at the NeuroRehab Campus in August of 2007. Elizabeth has following their rehabilitation. These concentrations in pediatrics and geriatrics. She is a member of community outings also help alleviate the Michigan Therapeutic Recreation Association (MTRA) and depression and provide opportunities the American Therapeutic Recreation Association (ATRA). for individuals to regain social contacts. Recreational therapists will visit many different places with client groups as they attempt to find activities and locations that interest the majority of the group. These venues include sporting events, museums, Pictured left: movies, theaters, shopping malls and parks, to name a few. Yaseni Caballero-Amaya Pet therapy is another intervention at Rainbow’s Ypsilanti technique that is used by Rainbow Treatment Center with recreational therapists. Interacting with Wilber, a pet therapy dog. animals can alleviate stress and enhance overall mood. Animals can also give individuals a sense of normalcy, and petting can stimulate sensory perception. Benefits of Recreational Therapy Psychosocial Cognitive Community Reintegration Physical Outcomes Enhances body image perceptions Increases mental alertness Prevents social isolation Increases immune system activity Increases attention span Develops/maintains social skills Reduces pain Enhances memory skills Develops self-advocacy skills Increases muscular strength Improves organizational skills Minimizes disability stigma Improves flexibility & balance Improves problem-solving Helps management of environmental barriers (e.g. stairs) Improves cardiovascular functioning Changes attitudes toward disability Improves sense of self Helps control stress Enhances self-efficacy Provides sense of mastery Provides knowledge of community resources Increases activity level Source: www.ncrta.org/Professional/benefits.htm Develops consistent activity routines for diabetes maintenance Reduces decubiti and urinary tract complications Increases endurance RainbowVisions 8 ABI Technology Corner Susceptibility Weighted Imaging By I Kirstin Olmstead, Assistant Editor What does it do? identifying multiple sclerosis by detecting SWI is effective in detecting brain lesions and demonstrating the presence of n September 2007, Dr. Mark Haacke, a abnormalities due to head trauma, stroke, iron in the gray matter. world-renowned physicist and professor tumors, hemorrhages, multiple sclerosis This new imaging technology offers of radiology and biomedical engineering and Alzheimer’s disease. medical professionals and researchers at Wayne State University, spoke on the For example, SWI can display images of more precise and well-defined images of topic of Susceptibility Weighted Imaging at hemorrhages in the brain for those suffering the brain that could prove useful in the the Brain Injury Association of Michigan’s from stroke. It may also be able to pinpoint diagnosis and treatment of brain injury and annual conference. I had the privilege of the origin of the stroke itself and identify neurological disorders. We hope to hear participating in this session and learning the exact location of the at-risk tissue. more from Wayne State and other centers more about this fascinating new technology. Although the specific reason SWI is able to about this exciting new breakthrough in The overview below is a combination of capture these images is still being explored, medical imaging. what Dr. Haacke presented and information it may be due to increased venous blood provided in a SWI brochure, available volume or reduced oxygen-saturation online at www.mrimaging.com. levels in the tissue. This technology also offers improved What is SWI? detection of tumors in the brain. Since Susceptibility Weighted Imaging (SWI) aggressive tumors tend to have a rapidly is a cutting-edge technology that uses growing network of blood vessels with extremely high-resolution imaging to frequent microhemorrhages, SWI’s detect damage to the brain caused by sensitivity to venous blood and blood microhemorrhages, shearing and diffuse products makes it possible to detect these axonal injuries. The technology was hemorrhages and identify the boundaries originally developed to map the brain’s between the tumor and healthy tissue. This venous architecture. imaging technique also has the capacity This high-resolution imaging allows to capture changes in blood flow within medical professionals to see even the the brain caused by tumors or aneurysms. smallest lesions in the brain. By exploiting It may be the future in determining the the susceptibility differences between status of a brain tumor and predicting its tissues, SWI’s high-resolution enhanced- expansion into the surrounding tissue. contrast imaging maps areas of the brain It has already proven useful in detecting that exhibit venous blood, hemorrhage and abnormalities in patients with Sturge- iron storage. Weber disease when conventional MRI methods revealed none. 9 Why is it useful? While iron content in the basal ganglia This technology has the potential to help of the brain is normal, SWI can indicate medical professionals provide more precise abnormal iron content levels in this area of diagnoses for a wide range of neurological the brain linked with Alzheimer’s Disease disorders and injuries. It also paves the way or other neurodegenerative disorders. It for better long-term studies with patients. promises to be an extremely useful tool in RainbowVisions Sources: Haacke, E. Mark. 2007. A New MRI Protocol for Acquired Brain Injury: Perfusion Weighted Imaging (PWI), Susceptibility Weighted Imaging (SWI), and Diffusion Tensor Imaging (DTI) Presented at the annual BIA of Michigan Conference, September 28, 2007. Haacke, E. Mark. 2006. Susceptibility Weighted Imaging. http://www.mrimaging.com/images/ website/File/5th_Edition_English.pdf. (Accessed October 31, 2007.) Bartzokis, G., Tishler, T.A. 2000. MRI evaluation of basal ganglia ferritin iron and neurotoxicity in Alzheimer’s and Huntingon’s disease. Cellular and Molecular Biology 46, no. 4, http://www.ncbi.nlm.nih.gov/ sites/entrez?cmd=Retrieve&db=PubMed&li st_uids=10875443&dopt=AbstractPlus (accessed October 26, 2007.) www.rainbowrehab.com WIN T E R 2007 / 2008 Employee of the Season - Spring 2007 Rehabilitation Assistants Ann Arbor Apts: Heather Morgan, William Weems & Lamont Miller After School Program: LaShaundra Little APFK I: Vivienne Shaw APFK II: Raquel Johnson Arbor: Kristi Vaupel Bell Creek: Andrella Moore Belleville: Lisa Coleman Bemis: Felisa Rowsey Briarhill: Diane Evans Carpenter: Francis Nzau OC Townhouse: Michelle Nelson Elwell: Mario Harvey Page: Yinka Egbeleye Garden City Apts: Marocca Davis Parkview: Tami Brooking Gill: Elnora Bobbitt Shady Lane: Bridget Miller Glenmuer: Whitney Perry Southbrook: Candice Nelson Highmeadow: Andre Morgan Talladay: Amy Hall & Sonia Pate Hillside: Brooke Burba Woodside I: Carrie Farmer Home Health: Tina Milligan & Sandy Haygood Woodside II: Judie Hull Maple: Cynthia Woods NRC: Laura Sarten & Kelila Hawkins Brookside: Justin Wargo & Sandy Saxton House Managers Tresa Ellis Administration/ OEI / RehabTransport Professional / Therapy Staff Chris Herdell Congratulations to our Outstanding Staff! Lisa Hildebrandt Brian Hatfield Bill Carlton Celeste Mullins Kristian Powell After School & Saturday Day Programs To register or for more information call 1.800.968.6644 E-mail: [email protected] • www.rainbowrehab.com RainbowVisions 10 Interdisciplinary Team Approach to Therapy – Tom Chadwick Continued from page 4 In 1994, his mother passed away and Tom’s father became the primary caregiver. In June of 1998, Tom was admitted to Rainbow. It was the first formal therapy he had received in more than 10 years following his brain injury. During this time, Tom suffered from seizures almost every other day. He Occupational Therapy Pictured above: Occupational therapist Kathy (right) working with Tom Tom’s current therapies at a glance … The overall goal of Tom’s treatment team is to help him achieve the greatest degree of independence possible given his current physical, behavioral and cognitive abilities. Mental Health Therapy Tom and his mental health specialist are seeking to improve his mood stability, lower anxiety, and maintain proper behaviors. Through Rainbow’s behavioral programs and his sister’s follow through at home, Tom’s outbursts have decreased as he’s learning to manage his emotions. was extremely thin and had very little stamina. In February of 1999, he was sent for a Wada test, which examines language and memory on one side of the brain at a time. This was done to assess his candidacy for surgical relief for his seizure disorder. Deemed a good candidate in June of 2000, Tom underwent a right anterior temporal lobectomy. This surgery was successful and substantially reduced his seizure activity. After his surgery, Tom began to make great strides in therapy and rehabilitation Occupational Therapy as a whole. He was better able to focus, The focus of Tom’s occupational therapy is building residential independent-living pay attention and voice his needs. He skills. Tom is working on activities that include bank transactions, creating grocery had increased learning retention, memory lists, going grocery shopping and following recipes cards while cooking. and physical tolerance. Unfortunately, Recreational Therapy Tom and his recreational therapist have been working to increase his strength and stamina while exercising. Tom is becoming more flexible to changes in the order of his exercise routine. He is also learning to operate the equipment – treadmill, bike and strengthening machines. He enjoys swimming on a weekly basis as well. Rainbow Group Activities his increased awareness had a negative side effect – Tom easily became agitated and irritable. There was a noticeable decline in his emotional tolerance and an increase in verbal outbursts. Sometimes, he would become extremely angry, and it was difficult to identify the triggers of Tom attends many group activities while he is at Rainbow. These activities include these episodes. Rainbow’s mental health woodshop, mat group (for physical therapy) and community outings. These groups specialists discovered that with Tom’s are designed to help Tom and other clients discover new activities they enjoy and newly acquired awareness, he perceived experience a sense of accomplishment. many circumstances as injustices and felt Speech Language Pathology Reading comprehension and interpretation of information printed on maps and home care products has been one component of Tom’s speech therapy over the past months. He and his speech language pathologist practice listening and informationgathering skills during phone conversations. They are also working to help Tom establish eye contact with others during face-to-face conversations. he deserved to be the center of attention at all times. If he wasn’t, he acted out. According to Kathleen Sobczak, Tom’s former case manager at Rainbow, “Tom was overwhelmed by too much auditory and visual stimulation, causing him to become distracted by his own thoughts. Tom couldn’t figure out why he had such 11 RainbowVisions www.rainbowrehab.com WIN T E R negative emotions – he couldn’t put his Lines of communication finger on what was making him upset.” The communication between the In addition to his behaviors, Tom was treatment team and family is critical not receiving the support he needed to success and is handled formally at home. Living with his father, he was through focus meetings – but given little opportunity to work on his there is also a tremendous amount newly acquired skills. According to Tom’s of informal communication. neuropsychological evaluation, his father Depending on what therapies are stated, “I just don’t have the patience … planned daily, Tom’s therapists pass it’s easier to do it myself.” Tom’s father along critical information to make was also struggling with health issues. sure each session is successful. He With increased awareness and lack of also has a rehabilitation assistant consistency from therapy to home, Tom (Raena) that personally works found it very difficult to control his temper. with him. She knows when Tom It became essential that the therapy team is heading toward an outburst work together to help him overcome his or when Tom needs additional negative behaviors and bring his family on assistance. In addition, Tom’s family board so he had consistency. wants the therapy team to call whenever something happens so How Tom, his therapy team and family that his rewards and restrictions are put it all together … reinforced at home. “The family In January 2007, Tom’s sister Lori has been phenomenal in trying assumed responsibility for his care. She to reinforce the reward system at moved in with Tom after their father passed home that we use during therapy,” away. This caused a great disruption said Kathleen Sobczak. “This has in his daily routine. Rainbow’s mental been crucial to Tom’s success.” health specialists implemented anger One of Tom’s biggest gains has management sessions and worked with been to follow his own schedule, Tom to accurately identify signs of anger which he worked on with speech along with appropriate coping skills. In language pathologists (SLPs). addition, Tom’s sister began to restrict TV “Prior to his surgery, Tom was on and video games when he had outbursts. complete and utter autopilot,” said One technique his therapists used was to Angie McCalla, SLP. “When he first play to Tom’s strengths – since he found came to Rainbow, he would not satisfaction in helping others, his team even enter a room by himself. He realized that asking him to assist with a would stand at the threshold near task would also help him cope with anger. the door and rock back and forth Continued on page 21 2007 / 2008 k c i w d a h C m To Tom Chadwick’s warm and friendly personality has made him a joy for therapists to work with. During the course of his treatment, his therapists introduced him to several activities that he enjoys including cooking, woodshop, swimming and bowling. Bowling has quickly become one of his favorite pastimes, and he eagerly anticipates weekly outings with Rainbow’s recreational therapy group. In his free time, Tom watchs TV and listens to music. Among his favorites TV shows are “Wheel of Fortune” and “MASH. “ Tom lives with his aunt, his sister Lori and her boyfriend, Steve. The family has two miniature Schnauzers named Mia and Hannah that Tom adores. Tom’s sister has worked closely with Tom’s treatment team to reinforce what he is learning in therapy at home. Her involvement and support have greatly added to his success. “The family has been phenomenal in trying to reinforce the reward system at home that we use during therapy ... this has been crucial to Tom’s success.” RainbowVisions 12 CARF Accreditation A MEASUREMENT OF Rehabilitation Quality T By Pawan Galhotra, LPT, ASQ CSSBB, CBIS Program Director he Commission on Accreditation of • Input from stakeholders – The organization’s primary focus is to meet and exceed the Rehabilitation Facilities (CARF), a private expectations/needs of the persons served and other stakeholders not-for-profit organization, celebrated • Accessibility – The removal of barriers to provide access to services its 40 anniversary in 2006. CARF is • Information management & performance improvement – Continuous improvement the premier internationally recognized is an objective, data driven process organization for the accreditation • Rights of persons served – The organization protects and promotes the rights of of rehabilitation service providers – individuals accrediting providers across the United • Health and Safety – The organization provides services in an accessible, healthy, safe States, Canada, Western Europe and South and clean environment accomplished by on-going internal and external safety audits as America. The organization is comprised of well as education of the persons served, personnel and other stakeholders three sub-entities: • Human Services – The success of the organization and clinical/financial outcomes are - CARF International in Tucson, Arizona dependent on the efficient utilization of well-qualified, competent, licensed personnel - CARF Canada in Edmonton, Alberta • Leadership – The organizational leadership is committed to diversity, corporate - CARF-CCAC in Washington, D.C. responsibility and compliance, and focused on the organization’s mission statement All three units work toward their mission, • Legal Requirements – The organization is in compliance with all federal, state, “to promote the quality, value, and optimal provincial and local requirements outcomes of services through a consultative • Financial Planning & Management – The organization is financially responsible and accreditation process that centers on solvent, operating in an effective and efficient manner while addressing organizational enhancing the lives of the persons served.” mission and values They accomplish this task by reviewing • Rehabilitation Process for the Persons Served – The rehabilitation process is focused organizational performance and compare on achieving predicted outcomes and reintegration of the persons served into his or her it to established quality standards. These community of choice in an efficient and effective manner standards are developed with input from • Measurement of Organizational Performance as compared to the specific CARF numerous stakeholders and are specific to standards of excellence – Specific areas covered under the medical rehabilitation the needs of the individuals served. With standards include: advances in rehabilitation medicine, CARF - Comprehensive Integrated Inpatient Rehabilitation Programs standards are reviewed and amended - Spinal Cord System of Care to meet evolving needs and therefore - Interdisciplinary Pain Rehabilitation Programs continuously improve the quality of - Brain Injury Programs accredited rehabilitation organizations. - Outpatient Medical Rehabilitation Programs Organizations accredited by CARF - Home and Community-Based Rehabilitation Programs are committed to providing quality - Medical Rehabilitation Case Management rehabilitation services. The comprehensive - Health Enhancement Programs accreditation process focuses on the - Pediatric Family-Centered Rehabilitation Programs following areas of organizational - Health Enhancement Programs performance: - Occupational Rehabilitation Programs - Stroke Specialty Programs th 13 RainbowVisions www.rainbowrehab.com WIN T E R 2007 / 2008 The following brain injury programs at Rainbow Rehabilitation Centers are currently accredited under CARF’s Medical Rehabilitation Standards (2004 manual): • Outpatient Rehabilitation Programs (Adults and Children) • Home and Community-Based Rehabilitation Programs (Adults) • Residential Rehabilitation Programs (Adults) • Long-Term Residential Services (Adults) • Vocational Services • Pediatric Family-Centered Residential Rehabilitation Programs • Pediatric Family-Centered Long-Term Residential Services The CARF “seal of quality” indicates that Rainbow has met the rigorous internationally recognized standards established and is considered to be consistent with the provision of quality rehabilitation services. Rainbow has consistently received a threeyear accreditation outcome since 1989, indicating substantial conformance of the applicable standards – the highest level of outcome possible following a survey. Rainbow is looking forward to its seventh CARF survey scheduled in January of 2008. During the survey process, CARF surveyors will observe the environment and interactions among staff members, management and clients; review policies and procedures; conduct interviews with clients, personnel and other stakeholders; observe ABOUT THE AUTHOR ... Pawan Galhotra, LPT, ASQ CSSBB, CBIS Education: Pawan Galhotra has a Bachelor of Science from Wayne State University in Detroit, Michigan. He majored in physical therapy and is a licensed physical therapist. Experience/Specialty: Pawan has extensive clinical experience in acute, sub-acute, long-term care and inpatient rehabilitation settings. His special interests include clinical education of students, staff, patients and family. Pawan also has significant experience in continuous quality improvement and program management at various facilities. In November of 2007, he officially received ASQ-Certified Six Sigma Black Belt Recognition (ASQ CSSBB), which is formal recognition of individuals who demonstrate a commitment to quality techniques in their career. Mr. Galhotra has been a CARF surveyor since 2004. He has had the privilege of surveying programs in the United States, Canada, and Europe. practices and service provisions and review documentation. The surveyors not only gather information regarding the provision of services but also provide consultation to improve the programs and the organization overall. We here at Rainbow look forward to this accreditation process as it provides an opportunity to not only display our excellent programs and organization but also to better serve our clients. This article will be concluded in the next edition of Visions with an overview of benefits of CARF to patients and organizations. As a consumer of products and services, we all search for quality and value. When it comes to seeking quality in the rehabilitation service arena, look for the recognized CARF seal of a quality. RainbowVisions 14 2008 Conference & Event Schedule February January – March MBIPC Michigan Brain Injury Provider Council February 1 - 2, 2008 Total No-Fault seminar for case managers and medical professionals at the Hotel Baronette in Novi, MI For info log on to: www.cmsadetroit.org February 6, 2008 CMAA Vendor’s Night at the Holiday Inn South in Lansing, MI For info e-mail: [email protected] February 12, 2008 MIARN Evening Meeting location TBA For info log on to: www.miarn.org February 26 - 27, 2008 Michigan CMH Winter Conference at the Radisson Hotel/ Lansing Center in Lansing, MI For info log on to: www.macmhb.org Learn over Lunch Scheduled meeting times are 12:00 - 2:00 p.m. (Registration at 11:30 a.m.) Cost: MBIPC Member $20 / Non-member $50 March For information e-mail: [email protected] March 6 - 7, 2008 BIA of Iowa Annual Brain Injury Conference at the Hotel Fort Des Moines in Des Moines, Iowa For info call: 1.800.444.6443 For 2008 dates, locations and topics, please log on to www.rainbowrehab.com Select Education & Publications / Conferences & Events Select the “Learn Over Lunch Series 2007” link March 11 - 12, 2008 Illinois Workers’ Comp Forum critical updates and proven cost-containment solutions at the Westin Northshore in Chicago, IL For info log on to: www.ilwcforum.com March 17 - 18, 2008 North Carolina Workers’ Comp Forum in Raleigh, North Carolina For info log on to: www.ncwc-conf.com 2008 dates and times will be added as they become available December 11, 2007 Topic: TBI Outcome Measurement Location: Applause, Grand Rapids Speaker information available online at www.rainbowrehab.com January 8, 2008 Topic: TBA Location: Radisson Hotel, Livonia For up-to-date additions, changes & 2008 conference dates log on to: www.rainbowrehab.com Select Education & Publications > Conferences & Events 15 RainbowVisions February 12, 2008 Topic: Biofeedback Outcomes & Case Studies Location: Applause, Grand Rapids Speaker information available online at www.rainbowrehab.com March, 2008 Topic: TBA Location: Holiday Inn South, Lansing www.rainbowrehab.com TBI Community Education Series February 2008 2007 / 2008 RINC WIN T E R Rehabilitation & Insurance Nursing Council Meetings Members Only Registration begins at 11:30 a.m. Followed by lunch / presentation at 12:45 p.m. For the 2008 Winter schedule contact Adrienne Shepperd: (248) 656-6681 or log on to www.rainbowrehab.com for current updates Presentation on: Memory, Retention, Recall & Rehabilitation Speakers: Julie Blasko Pam Boykin Angie McCalla Christine Ryckman Angie Spears Kerri Torzewski 2008 International Conferences ... APRIL 9 - 12: The International Brain Injury Association’s 7th World Congress on Brain Injury Pestana Palace Hotel, Lisbon, Portugal. Contact: [email protected] www.internationalbrain.org. JUNE 4 - 7: European Congress on Physical Medicine & Coming Spring 2008 Accessible Home Modifications Covering clinical evaluations, the building process and new available accessible home products. Rehabilitation Brugge, Belgium www.medicongress.com SEPTEMBER 18 - 21: 7th Mediterranean Congress of Physical Medicine & Rehabilitation Medicine Potorose, Slovenia Contact: [email protected] Rainbow Rehabilitation Centers offers quarterly community education seminars that cover topics related to brain injury rehabilitation. For up-to-date information on our quarterly Community Education out a registration form, log on to presentations, log on to www.rainbowrehab.com www.rainbowrehab.com For up-to-date information on our Community Education events and to fill SEPTEMBER 24 - 27: 5th World Congress for NeuroRehabilitation Rio de Janeiro, Brazil Contact: [email protected] RainbowVisions 16 THE RAINBOW TEAM APPROACH TO Nutrition & Meal Planning By I n the world of medicine, hospitals may Kirstin Olmstead, Staff Writer that has clients with very specific dietary planned. Portion control becomes crucial. be known for their quality of care, but needs. In an effort to achieve this delicate Sometimes, the options already available typically not for their quality of food. balance, Cynthia has become a master of on the menu are more than sufficient to But a new trend is beginning to surface substitution meet a client’s needs. When they are not, in medical facilities nationwide – more “We try to have low-carbohydrate, Cynthia provides alternatives. balanced menu offerings featuring low-fat, low-sodium menu items. Instead “I had someone who was on a high- healthier, more flavorful food, and Rainbow of using butter, we use olive oil or a less- fiber diet,” said Cynthia. “So we increased is not exempt from this increasingly saturated fat choice,” said Cynthia. “I their portions of vegetables and fruit. I had popular movement. In an effort to offer am able to offer a variety of foods that someone on a renal diet where potassium better meal options to clients, Cynthia may appear high in fat, but are lower- intake was restricted, preventing them from Jeffrey was hired to fill the role of executive calorie options that taste good.” The eating potatoes and oranges.” chef at its NeuroRehab Campus (NRC). right seasonings coupled with cooking Most food is made from scratch at the Cynthia is a firm believer that meals technique is key. Roasting vegetables, for NRC including the soups, vegetables dishes should not only be delicious but also example, instead of blanching them and and salads. Sugar-free desserts are often nutritious. At the NRC, Cynthia works grilling or searing meats rather than using purchased because of how time consuming collaboratively with Rainbow’s dietitian heavy gravy reduce total fat and calories. they can be to create. Menus are seasonal to ensure clients are receiving the proper But even creating a well-rounded and run on a two-week rotation, but to mix of nutrients. But striking a balance menu still requires careful monitoring of keep things exciting, Cynthia plans at least between taste and nutrition isn’t as easy clients with restricted diets. For diabetics, one themed meal each month. She and her as it may sound, especially in a facility carbohydrates must be counted and staff will even dress for the occasion and decorate to reflect the theme. “We just hosted A Taste of the Orient, and I brought in almond cookies and fortune cookies,” said Cynthia. “We made shrimp siewmai with hoisin, chicken tempura, beef lo mien, fried rice, plum sauce and egg-drop soup. We had goodie bags filled with fortune cookies, fans, dragons and balloons. The clients loved it.” Although it’s not always easy to marry taste and nutrition, the coordinated efforts of Rainbow’s dietitian and executive chef have enabled Rainbow clients at the NRC to enjoy the harmony of a truly balanced, flavorful diet. 17 RainbowVisions www.rainbowrehab.com WIN T E R 2007 / 2008 Taste of the Orient Menus & Nutrition At the NeuroRehab Campus (NRC), menus are printed daily with each client’s name, room number and diet restrictions. Clients receive assistance making menu selections prior to each meal – choices that best fit their specific nutritional needs as directed by a doctor and/or dietitian. If a modified diet is required, it is prepared and plated in the kitchen by NRC cooks. Pureed, chopped and ground menu items are available for individuals requiring textured diets. Even with these restrictions, plate Sample Menu Breakfast Assorted Cereals • Fresh Fruit • Waffles to Order • Sausage Links Lunch Soup of the Day • Salad Bar • Steak Fajitas Roasted Apples w/Caramel & Cream presentation is important – The Dinner executive chef and staff often use food Soup of the Day • Greek Tomato Salad Stuffed Pork Chops or Grilled Thai Swordfish w/Lime & Cilantro Whipped Sweet Potato • Capri Vegetables molds for presentation, ensuring that individuals with special dietary needs receive the same tasty menu options as Dessert: Melon Cup or Whole Fruit other clients. RainbowVisions 18 Interview with Trisha Meili Continued from page 6 Pictured below: Trisha, in sunglasses, running across the finish line of the 1995 NYC Marathon. At some point, you were asked to do a presentation in front of noninvestment bankers at work and that helped to boost your confidence. But then you also mentioned that certain aspects of your work brought up moments of self-doubt. What advice can you give to others with a brain injury that have re-entered the workforce and are facing emotions of self-doubt? Before my injury, I had moments of selfdoubt at work, too. After my injury, that old demon of self-doubt was multiplied about a thousand times. At speaking engagements, I try to tell survivors to concentrate on what you can do post-injury. Not to say that individuals should ignore challenges, but first, take stock of where you are and how far you have come. Feel good about those gains and how they relate to the present moment. By assessing what you can do right now, the challenges ahead are not so overwhelming. If I worry that, “I’m not as Figure 3 good as I used to be” then I’m not going to be any good. It’s more important that of nonprofit organizations. My message I concentrate and focus on making my is of hope, possibility, resilience and current situation better. It’s tough because overcoming adversity. I currently speak to thoughts of self-doubt do come. When I all kinds of groups including businesses, have those frustrating moments, I take a universities, brain injury associations, deep breath and try to remove myself from sexual assault centers and hospitals. I use the situation. If I get too caught up in self- my personal experience to let people know doubt, it can become a downward spiral. that they can accomplish so much more If I get too down, nothing seems to help. than they ever thought possible – they can It’s better to take a step back and say, “Hey, reclaim their lives. wait a minute. Look at what I have done I like to give the message: “Yes, with and look at what I can do.” Feel proud of brain injury, there are deficits, but instead that; feel proud of how far you’ve come. of looking at the negative, look at what you can do.” Survivors can do so much more What are you doing today and what future than most people think is possible. I try to plans do you have? spread the word that there is hope. Currently, I speak around the country In addition to my speaking engagements, and work very closely with a number I am the chairman of the Achilles Track 19 RainbowVisions www.rainbowrehab.com WIN T E R 2007 / 2008 Club, an organization that encourages people are not going to make it happen individuals with disabilities to participate in for them. At the same time, I think it is running. At Achilles, I founded the annual important that survivors realize they are not Hope and Possibility 5 Mile Race in Central alone. It was important for me to feel like Park. It is a wonderful event bringing the my rehabilitation team was working with able bodied and those with disabilities me – that we were in this together. together to set goals and compete. The best Also, I saw myself as a survivor rather news is that we are expanding this race to than a victim, and that was very important. other cities! I am on the board of directors In part, that view came because of the of Gaylord Hospital (the rehabilitation support I received. The message was loud hospital where I recovered), and I am also and clear: I had done nothing wrong running. She also enjoys getting more involved in speaking to VA and I wasn’t to blame. Seeing myself as a dance performances and hospital brain injury programs. survivor was a mind-set, and it helped me several genres of music from heal. It also helped me take responsibility classical to rock ’n’ role. What responsibility do you think brain for my recovery and helped me muster the injury survivors have in order to meet energy needed to move forward. Taking their rehabilitation goals? back control of a situation where I was I believe survivors need to take completely out of control was an integral responsibility for their recovery. Other part of the recovery. t About Trisha Married for 11 years to Jim Schwarz Trisha loves to be out in nature kayaking, hiking and A Specialty Transportation Company We offer personalized, attentive and expert transportation services for individuals with special needs throughout Southeastern Michigan. Call: 1.800.306.6406 asier! e t o g t s ju d n u Getting aro RainbowVisions 20 Interdisciplinary Team Approach to Therapy – Tom Chadwick Continued from page 12 had a completely different focus, no longer concentrating until you physically moved him forward. Now, Tom can handle his own schedule.” Tom has made huge gains in handling social situations and is now able to initiate quality interactions with his peers. Tom still gets frustrated but is better able to control his outbursts. Transition and flexibility are still difficult concepts for him to grasp and his therapy team continuously makes minor adjustments so he slowly becomes accustomed to change. As he faces new challenges, the support of his therapy team and his family’s consistency at home will continue to be vital. For now, Tom’s active therapy is continuing, and with consistent programming, he is continuing to make substantial rehabilitation gains. on wound care and medical treatment. He needed a very structured program to move forward with rehabilitation. The structured environment in Rainbow’s Residential Program was very different from what Jake was accustomed to, and he wasn’t ready to commit. After only two months, he signed out against medical advice. Again, Jake kept in touch with his Rainbow mental health counselor and reported having problems related to his brain injury. He couldn’t multi-task or concentrate and was surprised at how hard it was to perform in his work environment. In 2006, Jake received information Case Study #3 - Jake Kepler Jake Kepler about Rainbow’s Garden City Apartment Program and wanted Twenty-two-year-old Jake Kepler is a young man with a bright future. After readmitting to Rainbow in March 2007, Jake was determined to become an independent young adult. “I relied on my mom and dad and grandma to support me,” he said. “I don’t want to do that anymore. Rainbow is helping me become independent.” August 2004 – Jake Kepler was 19 to come back to Rainbow. This years old when he was involved in a program is structured to support rollover car accident. For two days, he individuals with brain injuries was suspended by his seat belt upside while living with their family or down until he was found and transported loved one. Jake liked the idea to the hospital. He had trauma to the head of receiving supports while and a soft-tissue injury across his entire living with his girlfriend, but abdomen. the Rainbow team did not think Jake was admitted to Rainbow after he was ready for this level of a two-week hospital stay to receive independence. They told him he occupational, physical, speech and needed to learn how to maintain mental health services. Rainbow’s mental a job and appropriately structure free time before he could handle health specialists thought he had ability to this level of independent living. In March of 2007, Jake re-admitted successfully rehabilitate, but Jake was not to Rainbow. This time, he was committed to advancing through the committed to treatment – he just wanted rehabilitation process. his physical wounds to heal. After three Jake’s original neuropsychological evaluation documented months of therapies and medical treatment, cognitive deficiencies, especially memory. Joe Welch, a Rainbow Jake left Rainbow’s program. behavioral analyst assigned to Jake’s therapy team, didn’t think Jake kept in touch with his mental health that assessment matched what Jake demonstrated during therapy. counselor at Rainbow and decided to He thought Jake could be successful in advancing to independent- again try rehabilitation for a second time. living skills. According to Joe, “He [Jake] didn’t think he was Jake admitted to Rainbow and his therapy skilled. But, bottom line, Mr. Kepler stepped up to every challenge Jake has successfully maintained a job at a local grocery store and recently moved to Rainbow’s apartment program. He enjoys nature and taking walks in the woods. He aspires to one day become a landscape designer and has plans to take classes in the future. Continued on page 23 21 RainbowVisions www.rainbowrehab.com WIN T E R 2007 / 2008 Ann Arbor Apartments Jake’s current therapies at a glance … Jake recently moved from a residential home into a Rainbow apartment, another step forward in his goal to achieve independent living. Jake has performed well at Rainbow and is enjoying more freedom and more responsibility. He requires minimal supervision and is working toward independently accessing the community and Rainbow’s programming. Levels Program / Mental Health Therapy Jake has successfully completed the second stage of Rainbow’s Levels Program, which helps clients graduate to more independent environments as they progress in their rehabilitation. By continuing to cooperate fully with rehabilitation staff, follow residential rules and appropriately manage himself socially, Jake graduated to level three and paved the way for his therapist to recommend his transition to the less-structured apartment environment. Occupational Therapy Currently, budgeting and money management are Jake’s primary focus in occupational therapy. He and his therapist have set savings goals, and Jake has consistently paid his personal bills. Because of the level of independence he has achieved in meal preparation, planning and grocery shopping, his therapist has discontinued this area of his therapy. He will continue to participate in the cooking group at the apartments. Speech Language Pathology Jake and his speech language pathologist are working to improve his memory and his written, verbal and auditory comprehension skills. During sessions, Jake will practice reading passages from a magazine and answer questions afterward. They also work on math story problems based on time and money management. Jake also developed a budget plan to open a savings account. Vocational Therapy Jake recently began working at a grocery store four days a week, organizing and maintaining the shelves. His vocational therapist is mentoring him on many work-related skills including overall consistency, communication, attention to task, following guidelines and appropriate work interactions. His therapist notes that he is doing very well managing this new role. RainbowVisions 22 Interdisciplinary Team Approach to Therapy – Jake Kepler Continued from page 21 skill-building sessions. According to Kerri good goals. I believe that he will continue this therapist put in front of him, building Torzewski, speech language pathologist, to excel, but he needs a lot of support, his confidence on his own.” “Jake learns through repetition. He was praise and reassurance that he is doing Jake worked on anxiety issues, memory really worried about starting his job at the a good job. We, his therapy team, have problems and scheduling in his speech- grocery store, so we visited the store before become his supportive family.” therapy sessions. Since he never kept any his start date and went through various His interdisciplinary team feels it will kind of schedule, it was very hard for him tasks such as how to read tags and what to take additional structured counseling to plan his days. But with a lot of tenacity expect. We did this to decrease his anxiety.” and programming along with speech, and hard work, Jake is now able to hold According to Julie Slauterbeck, Rainbow occupational and vocational therapy down a job at a local grocery store. He vocational specialist, “I told Jake that before Jake is ready for his next step toward secured this position with the help of he is smarter than he thinks. He suffers independence. In the meantime, his goal to vocational and occupational therapists. from a lack of confidence, so working live with his girlfriend is alive and well, and Before he was offered the job, Jake went to at job where he’s able to excel is a real he is working hard along with the support two interviews. During therapy sessions, he confidence builder. Jake still needs to learn of his interdisciplinary team to build practiced interview questions followed by how to reduce his anxiety and set some independent-living skills. al c i g o l o ch y s p o r u Ne nt e m s s e s As A neuropsychological assessment attempts to evaluate the cognition, mood, personality and behavior of an individual. The evaluation usually includes a formal interview; a review of medical, educational and vocational records; Understanding brainbehavior relationships for individuals with traumatic brain injury interviews of significant others and testing using standardized neuropsychological instruments. Aspects of cognitive functioning that are tested typically include: • Perception – the process of acquiring, interpreting, selecting 23 There are three broad goals of a neuropsychological and organizing sensory information assessment: first, to diagnose and determine the nature of • Attention – selectively concentrating on one aspect of the underlying problems; second, to understand the nature environment of the brain injury along with the resulting cognitive • Orientation – awareness of time, place and person problems and the impact on the survivor (This is important • Memory – the ability to store, retain and retrieve so a rehabilitation program can be formed and a therapy information protocol selected); third, the assessment can help measure • Executive functions – processes such as planning, abstract change in functioning over time and aid in determining the thinking, selecting relevant sensory information, initiating impact of a rehabilitation program. appropriate actions and inhibiting inappropriate behaviors RainbowVisions www.rainbowrehab.com WIN T E R 2007 / 2008 eR nee Darga Case Study #4 - Renee Darga November 2002 – Renee was a high school senior living in Rogers City, Michigan, when she was involved in a serious motor vehicle accident. During the collision, Renee was thrown from the backseat into the front of the car. She was extricated from under the dashboard by rescue workers and taken to Alpena General Hospital. Her Glasgow Coma Scale measured just four, indicating she had incurred a severe traumatic brain injury. After a total of five months in three different hospital settings, Renee was admitted to Rainbow in March of 2003. When Renee began her rehabilitation, she was completely dependent on staff for all her needs. She could not sit or hold her head straight, and her right arm and leg were essentially nonfunctional. She had limited muscle control, was unable to feed herself and could not communicate. Renee’s prognosis was bleak – her treating physician said she would not rehabilitate. She would not go to college, live independently or even be able to care for her own basic needs. According to her neuropsychological evaluation, Renee had severe cognitive deficits. That was a very difficult time for her parents, and the prognosis was a big hurdle for her interdisciplinary therapy team. Though doctors must provide a realistic picture, nobody can accurately predict the future. Renee’s treatment team immediately began intensive physical, occupational and speech therapy. It didn’t take long for Renee to become the perfect example of interdisciplinary team success. Initially, she received co-treatments, which are simultaneous treatments by two therapy disciplines used to optimize therapy outcomes. There was carryover between therapies to produce consistency throughout her regimen. Renee thrived with this structure. How Renee progressed ... Since her arrival at Rainbow almost five year ago, Renee’s therapy gains have been substantial. When she began physical therapy (PT), her therapists began with rolling and fully supported sitting, then independent sitting. About three months after her admission to Rainbow, Renee had tendon-release surgery. This was an important step in her recovery because she could now progress to standing during her therapy sessions. Another surgery would later follow to provide her with increased ankle movement. Renee also received neuro-dynamic therapy (NDT) from occupational and physical therapists. One of the basic concepts of NDT is the idea that all aspects of the person – sensory/perceptual, emotional, psychological Renee Darga’s therapists describe her as a motivated young woman who has overcome incredible challenges and a very hard worker in her therapy sessions. Renee and her family are very close. Each weekend, her parents drive over 260 miles one way from Rogers City to visit her. Her therapists note that her parents are delighted by Renee’s progress and want to see her continue to achieve new milestones in her independence. She has one sibling, her sister Felicia, a student at Lake Superior State University, with whom she is also close. She enjoys shopping when her parents come to visit and frequenting her favorite restaurant, the Texas Roadhouse. “Rainbow has been everything to me,” said Renee. “When I first came, I was in a wheelchair, and the therapists helped me start walking again. I’m glad there is a Rainbow. It’s really helped me.” and physical – must be considered during recovery and treatment. The therapists used NDT techniques to obtain normalization of tone on her right side along with normal movement patterns, which they integrated into her daily functional activities. One of Renee’s biggest challenges was using her right side symmetrically with her stronger left side. The therapists took advantage of their NDT training and facilitated use of both sides of her body in a symmetrical manner during daily activities such as transfers, standing and walking. Continued on page 25 RainbowVisions 24 Interdisciplinary Team Approach to Therapy – Renee Darga Continued from page 24 Aquatics is an extremely effective sessions. She would get up at 5:30 a.m., therapy for impaired individuals because go to school, come to Rainbow’s treatment Renee received intensive speech therapy, swimming is a full-body activity, and water center for therapy and then do her focused on bringing her from a nonverbal buoyancy makes exercising an almost non- homework. It was amazing to see someone state to speaking and from not being weight-bearing activity. Renee progressed with a severe traumatic brain injury able to able to eat to consuming a regular diet. from simple movements to nearly handle that workload.” When she was first admitted, she was independent swimming and currently is Renee now lives at Rainbow’s Garden unable to consistently follow commands working on integrating breath skills to her City Apartments and works at RipCo, a and responded to pain with simple stroke. sheltered workshop. She has progressed vocalizations. Now, she can effectively to working with recreational therapists on communicate not only her needs but Strong gains in rehabilitation ... using public transportation and identifying her opinions and feelings as well, as she During her rehabilitation, Renee earned some leisure interests. continues to work on clarity and inflection. her high school diploma and is continuing While Renee has shown vast Aquatic therapy was added to Renee’s to working on coping strategies. “Renee rehabilitation gains, she continues to rehabilitation when she was ready. Again, is an incredibly hard worker,” stated Jenny require the services of a guardian and co-treatments were implemented with an Auty, Rainbow kinesiologist. “Renee went must be monitored in her apartment. occupational therapist and kinesiologist. to school while receiving full therapy Continued on page 27 Garden City Apartments Family & Pet Friendly Garden City Apartments offer a unique and supportive family environment where residents with traumatic brain injury are empowered to work toward therapy and recovery goals. At Rainbow’s Garden City Apartments, adults can reside as a single, as part of a family, or as parents caring for their children – Rainbow’s Staff provides the necessary support. To download a brochure log on to: For a tour or more information call... www.rainbowrehab.com 1.800.968.6644 Select Education & Publications Rainbow Literature 25 RainbowVisions www.rainbowrehab.com WIN T E R 2007 / 2008 Renee’s current therapies at a glance … Renee recently moved from a residential home to Rainbow’s Garden City Apartments, a living environment that affords her greater independence. Her case manager notes that, overall, she has done well managing herself and her new home. Fitness Renee participates in aquatic therapy weekly to improve her overall walking skills and coordination. Her swimming goals coincide with her occupational and physical therapy objectives to help increase stability and endurance. In addition, she attends fitness sessions two times a week to build endurance and strength. Mental Health Therapy Mental health therapists help Renee practice assertiveness skills and non-aggressive communication skills. They practice safety and problem-solving skills in business and community settings and work on behavior control, which has been successful. Nursing Renee is actively working with the nursing staff to manage her own medication. To assist her, the staff packages her medication for the next day and distributes it to her the night before. Renee is Pictured above: Physical therapist Payal (left) and occupational therapist Carole (right) utilize neuro-dynamic therapy (NDT) therapy with Renee in a co-treatment session. This was done early in her rehabilitation to help maximize her rehabilitation gains. responsible for keeping her medications for the day and calling in after she takes them. Her nurse comments that she has been successfully and consistently Recreational Therapy executing this task. Renee and her recreational therapist have been working on developing hobbies and outside interests. She is also learning how to access public Occupational Therapy transportation. The main focus of Renee’s occupational therapy has been domestic responsibilities such as cooking Speech Language Pathology and cleaning. She has done well in her new semi- Renee no longer needs to meet with her speech language pathologist on independent living environment at Garden City a regular basis and currently only receives support when needed. Apartments and utilizes a planner to keep track of appointments. Vocational Therapy Renee works part-time at Rainbow’s Corner Café and at Rainbow Physical Therapy Industries Production Company (RipCo) assembling Adirondack furniture. Walking longer distances with a cane has been She is working on completing tasks independently with minimal cueing. challenging for Renee, but she now practices walking over uneven surfaces. She meets with her therapist(s) four times a week. RainbowVisions 26 Interdisciplinary Team Approach to Therapy – Renee Darga Continued from page 25 Often, individuals with severe TBIs make substantial rehabilitation gains but still will require a lifetime of supports. Until her gains level off, she will continue to pursue her long-term goals, which include working in the community, attending college and living as independently as Individualized Treatment Combining therapy needs with personal goals and interests Individuals are always more responsive and successful when they work on goals that are personally interesting. Renee’s therapy gains were substantial. Much of that success can be attributed to her treatment team taking a personal interest in her life and building around her interests and goals. possible. When Renee began her rehabilitation program, she was heavily involved in regaining “In the last few years Renee has basic skills such as swallowing, eating, standing and basic movements. Once Renee grown into an adult and regained so recuperated enough, her treatment team built her therapies around Renee’s goal to finish many functions,” stated Jenny D’Angela, high school and earn her diploma. While living at a Rainbow residential community home, Rainbow mental health counselor. “She Renee enrolled at the local high school and her interdisciplinary therapy team focused has learned to speak again and has gone sessions and skill building around her high school classes. from a wheelchair to using a walker independently. Her treatment team thinks she’s pretty amazing.” Renee had a heavy class and therapy load for an individual recovering from a severe traumatic brain injury. Some of the skill sets she worked on during this time were: • Organizing and scheduling – Renee had to relearn how to prioritize and complete homework assignments on time. • Mobility – Renee used her wheelchair effectively in the community and practiced walking for short distances. • Speed – Occupational therapists concentrated on speeding up basic living tasks such as showering and getting ready for school. Renee’s challenge was to get showered and fully dressed in only twenty minutes, which she accomplished. Renee also wanted to attend her prom, so her team provided dance lessons (with her date) during occupational and physical therapy sessions. Prior to the prom, Renee’s Putting it all together ... As these four case studies illustrate, Rainbow’s team approach to rehabilitation is pivotal to individual therapy successes. By taking a “big-picture” approach to rehabilitation and bringing every therapy discipline together working toward common rehabilitation goals, the patient benefits by receiving streamlined care, tailored to his or her specific needs. As the team helps the individual rehabilitate, they work together as a group to build skill sets, reinforce behaviors, identify deficits and implement compensatory strategies – all to help individuals reach the highest level of independence possible based on their unique situation and abilities. To learn more about Rainbow’s professional therapy disciplines, log on to www.rainbowrehab.com and select Rainbow Benefits > Rainbow Professionals. 27 RainbowVisions therapists took her to the prom location to run through skills needed for that evening. They selected an appropriate area for her and her date to sit and practiced walking onto the dance floor; they helped her select her dress and shoes – all in preparation for the evening. This was done to promote therapy success by working on skills combined with goals important to Renee. R ’s enee m Pro High School Graduation Rainbow New Hires www.rainbowrehab.com WIN T E R 2007 / 2008 Summer 2007 Julie Tiberia – Residential Program Manager at the Ann Arbor Apartment Program Julie is a graduate of Eastern Michigan University with a Bachelor of Science concentrating on psychology and social work. Julie comes to us with over 11 years of experience with special needs and adolescents. Julie Tiberia Elizabeth Stahl – Activities Coordinator at Rainbow’s NeuroRehab Campus Elizabeth has a Bachelor of Science from the University of Toledo in recreational therapy. Fall 2007 Adriane Corlew, OT – Occupational Therapist Elizabeth Stahl Adriane is a graduate of Western Michigan University with a Bachelor of Science in occupational therapy with three years of experience in post-acute rehabilitation. Donna Lee, RN – Nurse at Rainbow’s NeuroRehab Campus Donna joins Rainbow with her associates degree in nursing from Highland Park Community College. Donna worked in a hospital setting for over 17 years before returning to school for her RN. She brings with her six years of experience in occupation as well as long-term care nursing. Adriane Corlew Nancy Wybo – Case Manager at the Oakland Center working with pediatric clients. Nancy is a graduate of Northern Michigan University with a Bachelor of Science in health education and psychology. She is currently working on her master’s from the University of Arkansas in rehabilitation counseling. Nancy brings with her seven years of experience in vocational and medical case management. Nancy Wybo Jennifer Dobkin, PT – Physical Therapist at Rainbow’s NeuroRehab Campus Jennifer is a graduate of the University of Rhode Island with a Master of Science in physical therapy. She has over 12 years of experience as a physical therapist in rehabilitation. Lamar Habern – Behavioral Analyst Lamar returns to Rainbow with his Master of Science from Eastern Michigan University with a concentration in clinical behavioral psychology. Lamar worked Jennifer Dobkin for Rainbow while in college as a rehabilitation assistant in 1998/1999 and now returns with over six years of experience in behavioral psychology. Marcia Lester – Registered Dietitian for Rainbow treatment facilities and residential locations. Marcia has her Bachelor of Science from Michigan State University and her master’s degree in nutrition and food science from Wayne State University. Marcia has worked as a registered dietitian for over 20 years in a variety of settings, most recently in long-term care. Marcia Lester RainbowVisions 28 The Last Word What needs to be done… First, raise my taxes. Governor Granholm MY BELOVED STATE OF (who regularly converses with Governor MICHIGAN I Written by Milliken even in the current political climate of polarization) had to raise regressive taxes Buzz Wilson, CEO to balance the state budget, mandated by law. We should at least restore the Engler tax cuts. We need a thriving Michigan t’s been a year since my mother passed. where, in times of need, help is offered. I wrote about her in The Last Word (2007 Second, empty the vast, horribly winter edition of RainbowVisions) titled, Buccalo, on Michigan’s auto no-fault expensive, growing network of state prisons “Ina’s Beauty Shop.” In that article I decline are directly traced to the Engler where the nonviolent are crowding the described her influence on Rainbow’s majority on the Supreme Court. Bill has prisons. Jail is not the answer to drug origins, and her lessons are still valid, enumerated how Engler’s appointees are issues and we all know it. Why listen to the not only for Rainbow, but for my beloved slowly undermining the no-fault act, which hysterical few who are building a gulag of Michigan. resulted from a compromise brokered by incredible and lucrative proportions. There is a reason that Michigan has auto Governor Milliken. This is not a Republican Third, deal with the redlining issue no-fault, great universities, well-paid public or Democrat issue; this is classic economic straight up. This is obviously racist in nature employees and perhaps one of the finest warfare being waged on the poor and and we all know it. If you are born into medical delivery systems. I take pride in defenseless by the super powerful. poverty in Detroit, having to pay higher knowing that Rainbow fits well into this Whereas, once upon a time, the well-to- rates is unconscionable. Certainly, in the mold of excellence. do in Michigan progressively set up public short run, it would seem to make sense that During my lifetime, I have witnessed the programs and policies benefiting everyone. those who make the rates go up should pay highs and lows of life in the peninsula state. Now these forces are being marshaled to more – fine and dandy. Follow this logic: My mom was one of those enlightened wage open warfare on those very citizens why not make 83 separate regions in the souls who made life exciting and fun. who need effective government the most. state? Or 183? Why not an infinite number? We must return to that way of life and Governor Milliken makes the point that The answer is obvious. No one chooses overcome the internal conflicts that are Michigan’s economy has historically been to live in dangerous areas. The politics of turning my beloved home state into a cyclical, and it’s the role of government to reason, promulgated by Governor Milliken, series of unrelated bad experiences that are be there when its citizens need support. did not foster the every-man-for-him/ making life miserable for too many citizens. Yet, Engler cut the taxes of those who could herself attitude. He recognized that solving Forget political party (that is an irrelevant most afford it and decreased spending problems required reason, not hysteria, side issue), I am talking about entrenched for those who most needed it in times of and called for compromise wherein each positions that make it impossible to find economic hardship, such as now. This is respected and tried to understand the common ground. shameful. The destruction of Michigan’s position of the other. Thus, redlining is I ask myself, what would Governor economy makes me furious. My generation recognized as fostering the problem of Milliken do? His stewardship of Michigan is allowing the progressive state engineered body shop rip-offs, carjacking, car thefts was our high watermark. His own party by the generation of my mother and and chop shop operations driving up represents the low point as well – the governor Milliken to decline precipitously. the cost of auto insurance. This, in turn, 1990s when the Republican governor I won’t take it any longer and I will do leads to the poor (Detroit) having no auto nearly destroyed the state. In fact, Governor my part to restore balance and civility. I insurance, and in one of the complete Engler’s extremism in the name of freedom have always considered myself a Milliken ironies of Michigan life today, making them lingers on in the Michigan Supreme Court, Republican, and now is the time for me ineligible to be covered under the medical making a mockery of the institutions to step up to honor my mother, Governor coverage provisions of auto no-fault. Thus, installed by his predecessor Milliken, which Milliken and those who believe that the rich are again stomping on the poor – made Michigan great. government is there to help, not hurt. all in the name of economic freedom. No Articles written by our President, Bill 29 RainbowVisions wonder that my generation is screwing things up. I choose to spend my remaining requires understanding others’ differences it difficult, if not impossible, for us to time on this planet exposing this for what it as well as similarities. operate in residential neighborhoods. really is – economic warfare. Fifth, continue to focus on reason: We will oppose this. We will also try to Fourth, invest in Detroit. Rainbow, under Reasonable compromises with foster a sense of urgency in containing my leadership, has avoided Detroit because our clients and their family needs, rehabilitation costs. It is important that we of a perceived danger to employees reasonable compromises on the needs do not make auto insurance unaffordable. and juries who ignore the rules long of our employees, and yes, reasonable In fact, despite what some say, Michigan’s promulgated by the powerful. Under my compromises on the needs of insurance experience with no-fault has been positive. leadership, we will change that. There is companies. They are not the enemy. Early Our citizens get the best care available no reason why we can’t find rehabilitation on, I turned Bill Buccalo loose on forging anywhere. We have preserved one of locations that create a thriving, well- reasonable communication with the payor the gifts given to us from those voices of maintained and safe working environment. community. This is what Governor Milliken reason. I will challenge the executive committee to would have done and would do today. We are in this journey together. We can do just that. A third of my workforce is from Sixth, do our part. We will take on the continue on the road to mutual repression Detroit. It is an insult to them, as well as forces that try to prevent our population and stagnation, or we can listen to the to the memory of my mom, to perpetuate from living in residential communities. voices of reason in our collective recent this economic regression. What would The part of the state often referred to as past. My mom and governor Milliken have governor Milliken do? He was a close the home of the Reagan Democrats is given us a guide map for improving the friend of Coleman Young. To be progressive trying to redline our population by making lives of our fellow citizens. We can seize the moment. t NeuroRehab Campus The NeuroRehab Campus for adults with brain & spinal cord injuries offers Rainbow’s full Continuum of Care including active therapy, community outings and supported living for individuals with medical needs. Some of the unique features offered through the residential portion of the campus include... • Two 20-bed facilities with private bedrooms and private baths. Each room offers optional cable TV, internet access, telephone access and call light/intercom system access. • Physician visits on-site • Nursing services available on-site 24/7 • Executive chef • Professional treatment team on-site 2008 Silver Anniversary RainbowVisions 30 Rainbow Rehabilitation Center Locations: Ypsilanti Treatment Center 5570 Whittaker - PO Box 970230 Ypsilanti, MI 48197 734.482.1200 Oakland Treatment Center 32715 Grand River Avenue Farmington, MI 48336 248.427.1310 NeuroRehab Campus 25911 Middlebelt Road Farmington Hills, MI 48336 248.471.9580 For more information call toll free... 1.800.968.6644 E-mail: [email protected] www.rainbowrehab.com P.O. Box 970230 Ypsilanti, Michigan 48197 If you do not wish to receive copies of RainbowVisions, please e-mail: Presorted Standard U.S. Postage PAID Permit 991 Ypsilanti, MI [email protected]