ARTHRITIS UPDATE

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Arthritis Update
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ARTHRITIS FOUNDATION | 29 E. MADISON ST. | SUITE 500 | CHICAGO, IL 60602 | (800) 735-0096 | www.arthritis.org
Our Research Program
inside...
2
L
etter
From the Chair
Associate Board Update
3
5
Events Update
R
heumatoid
Arthritis
Speakers’ Bureau Training
6
7
V
olunteer
Get
Spotlight
Your Records Organized
Research Study
8 Northwestern Ohio
10 Kids Corner
11 Advocacy Update
12 U pcoming Public
Education Programs
h o w we operate
Our Financial Commitment
The Arthritis Foundation has invested more than $380 million on research to
support more than 2,200 scientists, physicians and health professionals involved
in cutting-edge arthritis research. During the current research year we have
awarded 179 grants, including 69 new and 110 continuing grants to researchers
in over 100 academic institutions.
Our Focus
The Arthritis Foundation is the largest private, non-profit contributor to arthritis
research in the world. Our Research Program complements government and
industry-based arthritis research by focusing on training new investigators and
pursuing innovative strategies for preventing, controlling and curing arthritis.
The Arthritis Foundation funds three major types of grant mechanisms:
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areer development and training programs—These grants encourage
scientists to begin research careers in the arthritis field and then help them
nurture their development into independent arthritis researchers.
Investigator-initiated—These grants support basic, clinical and health
services research relevant to arthritis.
S
pecial targeted research initiatives—These grants focus on promising areas
of arthritis research or on specific types of arthritis.
The Arthritis Foundation Research Program funds research with the greatest
potential for improving the lives of people with arthritis. Within its focused grant
mechanisms, the Foundation funds a broad spectrum of types of research and
scientific disciplines.
The research portfolio ranges from:
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Honoring Dr. Rowland Chang with
the Freedom of Movement Award.
Turn to page 4 for more information.
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asic “bench” research in such areas as genetics, immunology, biochemistry
and cell biology to identify genes that cause arthritis and underlying disease
processes;
t o clinical “bedside” and behavioral studies that utilize human subjects
to develop and test new medical, rehabilitation, surgical and psychoeducational treatments;
t o research in the “trenches,” that include epidemiology studies to increase
understanding of disease and health services research to improve quality
of care and ensure that scientific advances in treatment are integrated
into practice.
continued on page 6
BOARD OF DIRECTORS
Letter from the Chair
Dear Friends of the Arthritis Foundation,
Greater Chicago Chapter,
ASSOCIATE BOARD update
The Associate Board is in the
middle of its second year and
is going strong.
The Arthritis Foundation is making great
strides in helping people with arthritis.
We are funding critical research, advocating for more congressional funds, and
creating events and partnerships which further our mission:
to improve lives through leadership in the prevention,
control and cure of arthritis and related diseases.
As we continue to grow, our need for new members also
increases. If you are 21 years of age or over (living and/or
working in the city of Chicago helps too), and are interested in volunteering for the Arthritis Foundation in a
long term and fun way then becoming an Associate Board
member is for you.
We continue to raise awareness through community partnerships. We are especially focused on the underserved
communities which are at risk for health disparities. Since
our last publication, we have reached thousands in our
community outreach and education seminars, through
the Arthritis Foundation Life Improvement Series, in our
advocacy efforts and through special fundraising events.
The board meets quarterly at a downtown location to make
event plans, and also meets via conference call. They meet
for social outings throughout the year, as well as throw
fabulous fundraisers and advocate for people with arthritis.
If you are interested in serving on the Associate Board,
please contact Arthritis Foundation staff member Sharon
Tatom at 800-735-0096 x 30 or [email protected].
The Arthritis Walk was a huge success. Thank you to all
who volunteered and who fundraised on teams. You made
it all happen for us. And to our unforgettable honorees,
Carlie Passalino, Bridget Boockmeier, Jessica Levee, Gina
Blankenship and McKenna Kreiling, and their families, we
thank you for sharing your passionate stories, your enthusiasm and for raising awareness about arthritis. You truly
inspire us all. Please see page 3 for the full Arthritis Walk
wrap-up.
Upcoming Associate Board Event: Associate Board Purse
Party at 1154 Lill, November 7. Participants will create their
own custom handbags (just in time for the holidays) in a
festive party atmosphere. A portion of the proceeds will go
to the Arthritis Foundation.
Please see page 3 for a wrap-up of our famously successful
Flower and Garden Show at Rosemont Convention Center.
Board member and landscape architect with James Martin
& Associates, Heidi Sibert, created a phenomenal Enabling
Garden and educated the public about the ease and
benefits of continuing to garden even with arthritis.
See page 4 for a Joints in Motion update. This year we have
a record number of 128 athletes raising money for a cure.
Thank you to all who are involved with Joints in Motion.
This will be my last letter to you as board chair. My term
ends at the end of the year and Dr. Eric Gall will begin
serving as board chair of the Greater Chicago Chapter
in January. It has been my privilege and pleasure to serve
these past two years. Thank you for your support of the
Arthritis Foundation.
David Mekemson
Board Chair
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arthritis update
AB Welcome table at Cocktails for a Cause spring fundraiser at the Ashland.
The Arthritis Foundation’s bi-monthly publication
focuses on Arthritis Foundation-funded researchers
and their findings covering a broad range of topics in
the fields of arthritis, medication, pain regulation and
work disability. Go to www.arthritis.org/research to
receive your free copy.
Steve Cochran Celebrity Golf
Event Hits a Hole-In-One
Chicago Honoree Bridget Boockmeier and her dad,
Associate Board member Andy Boockmeier.
McKenna Kreiling (middle) Naperville Arthritis Walk
honoree at start line.
arthritis walks
keep on growing
understand that arthritis affects people of all ages and life stages.
We would like to recognize our top
fundraising teams. At newsletter print
time, each of these teams raised over
$10,000:
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Over 1600 walkers came out to walk
towards a cure for America’s number
one cause of disability while raising
nearly $300,000.
This year was the first year for the
DeKalb County walk, held at Northern
Illinois University on May 6. Thank you
NIU faculty and students, AOPi volunteers and the DeKalb community for
welcoming the Arthritis Foundation.
We would like to extend a big thank
you to all of the walk committees. It is
with your help, commitment and planning that make the Arthritis Walks of
the Chicago-land area such fun and
successful events!
Thank you to each Arthritis Walk
honoree and their families. Your faces
and personal stories help others
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eam Collections, Etc raised
almost $50,000
B
ing’s Team (Team Captain Dr.
Bing Chang) raised over $14,000
C
arlie’s Team (Honoree and
Team Captain Carlie Passalino)
raised over $11,000
T
eam SISU (Team Captain Doug
Van Treek) raised over $10,000
T
eam AOPi raised over $10,000
The 5th Annual Steve
Cochran Celebrity Golf
outing took place on
Monday, July 9th at
Wynstone Golf Club in
North Barrington. The event raised
more than $89,000. Special thanks go
out to Tom Estey of LaSalle Bank, AF
board member and golf event chair,
Steve Cochran of WGN Radio and
his Celebrity Friends who support the
event each year. Thank you to the
golf committee and all the wonderful
volunteers who came out for a day of
work and fun.
Way to go!
Finally we would like to thank our corporate sponsors for their continuous
support of the Arthritis Foundation.
Your support illustrates your investment in the people and communities
which the Arthritis Foundation serves.
We hope that these partnerships
continue to grow.
The event could not have been
such a success without our sponsors, Bowne, British Airways, Central
DuPage Hospital, Ice Mountain,
Latham and Watkins, LLP, Lawson
Products, Lord Bissell and Brooks,
Midwest Orthopaedics, Rescar, Inc.
and Temperature Equipment Corp
and The Ritz London. Additional
sponsors were Adamski & Conti,
Autumn Tree Care, Deloitte &
Touche, Ernst & Young, Friends of
the Arthritis Foundation, Gale Street
Inn, JohnsByrne and Trim-Tex.
Planning for the 2008 Arthritis Walks
will begin soon. If you are interested in volunteering, please contact
the Greater Chicago Chapter at
(800) 735-0096.
To get involved in the 2008 golf outing
call Mary Poland at the Foundation
at (800) 735-0096 x 23 or email:
[email protected].
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Enabling Garden Wrap Up
The Vertical Garden lessens time on the knees and
minimizes the potential for sore back muscles.
The Enabling Garden once again amazed and educated the public at the
Chicago Flower & Garden Show at Rosemont Convention Center. The designer
of the Enabling Garden was Arthritis Foundation board member and landscape architect Heidi Sibert with James Martin Associates, Inc. The Enabling
Garden illustrates that people with arthritis can continue to garden by creating
vertical gardens, raised flower beds, and utilizing ergonomic carts, tools and
hand trowels. ABC’s Karen Meyer highlighted the garden during her weekly
news segment.
fall 2007
­
Joints in Motion athletes are all smiles after a June training run!
Joints in Motion, the Arthritis Foundation’s marathon and half-marathon training team, is in the
midst of a fantastic season! We have a record
number of athletes (128 in total) on their way to
raising a record number of dollars for arthritis in
recent years!
Congratulations to our LaSalle Bank Chicago Distance Classic team, who completed their half marathon on Sunday, August 12. It was a great day for everyone, with many new personal bests and first time finishers. We are very proud
of everyone!
Our Chicago Marathon team and Disney training team continue to log many
miles each weekend in quest of their finish lines! The LaSalle Bank Chicago
Marathon takes place on Sunday, October 7 and Disney is set for the weekend
of January 12–13, 2008. We wish all of our athletes continued success as they
train for their events and raise funds for arthritis!
We continually want to thank and recognize our 2007 sponsors: Midwest
Orthopaedics at RUSH, Stinson Brand Innovation, Inc., Clif Bar Inc., and
Marathon & Beyond.
If you are interested in volunteering for Joints in Motion or would like to receive
more information about joining our 2008 teams, please contact (800) 735-0096
x 12 or [email protected].
Plan to end 2007 on a healthy note
while helping the 46 million Americans
with arthritis. To begin fundraising with
your team go to: http://jinglebellrun.
kintera.org/chicago07.
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arthritis update
Event Details:
n When: Sunday, December 2, 2007
n W
here: Merchandise Mart downtown—start line Kinzie Street at
Franklin
n What Time: Step-off is at 8:00 am
n What’s a 5K: 3.1 miles
n Kids dash is at 9:30 am
n Chip-timing included
n R
egistration fee is $30 online/$35
day of; Kids dash is $10.
All runners receive long sleeve t-shirt
and jingle bells for shoe-laces.
Mark your calendar for
Saturday, October 13,
2007 to celebrate one
of our own. The Greater
Chicago Chapter of the
Arthritis Foundation is
delighted to be honoring former
board chair, Dr. Rowland W.
Chang of Northwestern University
Feinberg School of Medicine as
our 2007 Freedom of Movement
Award recipient.
The Freedom of Movement Award
acknowledges leaders in the
advancement of research and
awareness for the management,
prevention, and cure of arthritis,
the nation’s number one cause
of disability. Dr. Chang is being
recognized for his vision, activism
and expertise in funding research,
advocating for people with arthritis,
and public health.
The evening will be held at
Northerly Island with Master of
Ceremony Emmy-award winning
journalist Nancy Loo, Fox News in
the Morning and Fox News at Noon.
A cocktail reception will begin
at 6:00 pm followed by a musical
salute of Dr. Chang’s favorites
from Deborah Sobol, pianist, Larry
Combs Principal Clarinet-Chicago
Symphony, Steve Balderson, cellist
and Carolina Gomez, cellist who is a
patient of Dr. Chang. Dinner begins
at 8:00 pm.
The presenting sponsor for the
evening is Abbott. Tickets for the
evening are $350 or $3500 for a
table of ten guests. For further
information call (800) 735-0096 x 23.
Rheumatoid Arthritis
2007 ANNUAL SPEAKERS’
BUREAU TRAINING
It affects not only the joints but the entire body so treating rheumatoid arthritis
isn’t just about treating symptoms, it’s about treating the whole person. The best
rheumatoid arthritis care is comprehensive care offered by dedicated specialists. A highly skilled team of rheumatologists, physical therapists, nurses and
researchers can provide this care while working to advance the understanding
of the disease.
Saturday, October 6
9:00 am–12:00 pm
A buffet breakfast will be
provided at 8:30 am.
Physician researchers are continually working to provide better ways to slow
or stop the progression of rheumatoid arthritis. This has produced remarkable
improvements in the medicines and other treatments that now can provide
dramatic relief to patients with rheumatoid arthritis. But it is important to get
access to these treatments early in the development of rheumatoid arthritis,
when the damage can be prevented, and when the treatment work their best.
Calvin R. Brown Jr., M.D.
Associate Professor of Medicine and Orthopedic Surgery Rheumatology
Training Program Director
Rheumatoid Arthritis Clinic at Rush University Medical Center
www.rush.edu
To receive a free listing of rheumatologists in your area, call (800) 735-0096.
SIGN UP FOR THE ARTHRITIS SELF-HELP COURSE
Arthritis Self-Help Courses will be offered this spring in Chatham, Englewood,
North Lawndale, and Glen Ellyn, along with many other sites, so please check
our website for exact dates and locations!
Oak Park Arms
408 S. Oak Park Avenue
Movie Theatre Room
Oak Park
The Speakers’ Bureau consists of volunteers who effectively disseminate
information about arthritis and the
Arthritis Foundation to increase
arthritis awareness. The training consists of basic information on arthritis
and its treatment, programs and
services and issues regarding public
speaking including guidelines, special sensitivities, tips for preparing
and delivering a presentation, frequently asked questions, logistics
and role play.
Pre-registration is required. Call
Marge at (800) 735-0096 x 16 or
e-mail [email protected] for
an application.
Toll-free (800) 851-6765 • [email protected]
www.arthritis.org
fall 2007
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Volunteer Spotlight
WE HONOR AND APPRECIATE OUR VOLUNTEERS:
bob & bonnie starzyk
Bob and Bonnie Starzyk have been involved with the Arthritis Foundation
since 2003. In April of that year, Bob, a sweeper driver for Waste Management,
began to wake up in tremendous pain. After numerous trips to doctors he was
diagnosed with rheumatoid arthritis.
Bob and Bonnie Starzyk
Living with the pain of arthritis, Bob became passionate about wanting to do
something to raise the much needed funds for a cure. His wife Bonnie, a nurse,
and family and friends showed their support of Bob’s newfound desire.
Bob turned his hobby and love of classic cars into an annual fundraiser to benefit
the Arthritis Foundation. The Classic Car Event is held the first Sunday of each
August in Burr Ridge. Bob owns a beautuful old Buick in pristine condition. It
only comes out the day of the car event, that is, if there is no rain.
continued from cover
Our Research Program
how w e o p e r a t e
Much of our progress can be attributed to our effective partnerships.
Some have been with other health
organizations such as the American
College of Rheumatology, and some
have been with private donors such
as the Segal family and the Charlson
Foundation.
By supporting researchers in the
early stages of their careers, we make
important initial discoveries possible
that lead to ultimate breakthrough
results. However, even with this commitment we still watch every year as
grants that rate “stellar” in our Peer
Review Process go unfunded. These
are potential cures that without the
funding are waiting to be realized.
When it comes to research, every dollar counts. The Arthritis Foundation
is dedicated to finding a cure for
arthritis. But we cannot do it alone.
We need your help.
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arthritis update
To promote the car show, Bob and Bonnie attend other car shows, talk to
participants and pass out flyers. As they promote their fundraiser to other car
enthusiasts, they educate the public about rheumatoid arthritis, and raise the
profile of the Arthritis Foundation.
Over the last four years the Starzyck’s have raised more than $8,000. They are
dedicated to the Arthritis Foundation and raising awareness until we have a
cure. Volunteers truly do make a difference. Bravo to Bob and Bonnie, we are
glad to have you on our team! If you are interested in getting involved with the
Arthritis Foundation, and putting your own personal spin on the type of service
you want to give, call (800) 735-0096.
Sign up for this free e-newsletter
at www.arthritis.org.
Get Your Records Organized:
An Easy Stress-buster
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If you’re a real frequent flyer at the hospital, try creating
a folder for each hospital stay.
G
o for color-coding! Why not inject some positive
energy into a potentially dull task?
By Jenni Prokopy, Founder—www.ChronicBabe.com
There’s nothing like a big stack of medical bills—or worse
yet, a call from a collections agency—to destroy your
peace of mind. But when you struggle to accomplish the
most basic daily tasks, the extra work of staying organized
can feel like a chore. The trouble is, neglecting personal
organization can increase stress, aggravating your arthritis
and making you feel even worse.
How to start getting organized:
Your first step is to commit to being organized. (Sound
simple? For a lot of people, this is a real hurdle.) Then,
begin to create a filing system for your paperwork:
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If you already have a filing cabinet, designate folders for
your bills, medication inserts, test results, etc.
Y
ou may want to buy a binder, some tabbed dividers
and a three-hole punch, and keep everything filed in
one binder.
S
ome people like to have one folder that holds all their
medical information chronologically. (An alternative:
designate a folder for each month.)
If you see lots of providers, you may want a different
folder for each.
Designate a storage space:
n T
his place is not your nightstand. In fact, it shouldn’t be
in your bedroom at all. This is stressful stuff, so keep it
away from any place you consider a restful sanctuary!
n If you already have a place for your household filing,
just add your health files.
n If you must hide your paperwork under your bed, consider using a handle-top plastic box so it’s easy to slide
in and out. The last thing you want is to pull a muscle
lugging around paperwork.
n P
ick a spot to archive older paperwork (like a basement
or storage space), and plan to clean out your files
every January.
Enlist the help of others:
n If you share a household (and record-keeping) with
others, make sure they’re clear on your new system.
n If you’re feeling uncreative, grab a friend and brainstorm ideas for getting organized.
n T
hat same friend (and maybe a few more) would
probably be happy to come over for an hour and help
get you organized. Make it a mini-party. A filing fiesta!
Participate in a Research Study
The Center for Research on Health and Aging at the
University of Illinois at Chicago is conducting a research
study to learn about the factors that influence exercise
among older adults with osteoarthritis.
The study is looking for non-Hispanic Blacks and nonHispanic Whites over the age of 50 who have osteoarthritis to participate. To participate in the study, you
would be asked to complete some surveys about
yourself. Completing the surveys should take between
60 and 90 minutes. You will be compensated for your
time. You may also be asked to take part in an interview
about your exercise habits and beliefs. Please contact
Cheryl at the Center for Research on Health and Aging
at the University of Illinois at Chicago to learn more
about the study and to be screened for eligibility at
(312) 996-5897.
fall 2007
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NW OHIO
Volunteer Spotlight
cindy binkley we salute you & Thank you!
“I think that the Arthritis Foundation has a lot to offer in terms of programs
and education and would love to find an avenue to make all of these more
accessible to those with arthritis.” says Cindy. Both her professional life, as the
administrator of Central Park West Rehab, and her life as a volunteer are pointed
in the direction of helping those with arthritis.
In the picture of Cindy, you can see pictures of her two daughters. When asked
to tell about her hobbies, Cindy laughingly said, “Hanging out with my family,”
which includes her husband Brad.
Cindy served in the 180th Air National Guard from June 1982 until October 2002.
She is currently the secretary for the Ohio Kinesiotherapy Association and has
been the legislative chair for that organization for the last 7 years.
Cindy Binkley, Volunteer Extraordinaire, is
highlighted here to honor her many achievements
and to motivate others to get involved.
She says her favorite part of volunteering is being able “to meet and work with the
other volunteers” and seeing “the benefits that those with arthritis obtain through
the different exercise and educational programs.”
Cindy became involved with the Arthritis Foundation in 1989 when she became
certified as an Aquatics and Self-Help Leader in order to offer more opportunities for the patients at CPW Rehab. She was asked to serve on the Health
Promotions Committee, a position she has chaired since 2000. As a result of
her passion for excellence, Cindy was asked to serve on the Board of Directors
of the NW Ohio Arthritis Foundation in 2001. She says her favorite part of
volunteering is being able “to meet and work with the other volunteers” and
seeing “the benefits that those with arthritis obtain through the different
exercise and educational programs.”
Fall Arthritis Walks
Raising funds for arthritis and viewing the range of
beautiful fall colors in the Midwest, walkers will have the
opportunity to walk a 5K (3.1mile) route or one-mile course
for those who prefer a shorter walk. Highlights at each of
the festive Arthritis Walks will include refreshments, entertainment, pep bands, balloons, and door prizes. Prizes will
also be given to those individuals and teams that raise the
most funds for arthritis.
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arthritis update
September 8: Bucyrus Arthritis Walk
10:00 am—Aumiller Park, Friendship Pavilion
September 29: Tiffin Arthritis Walk
10:00 am—Hedges-Boyer Park
October 13: Van Wert Arthritis Walk
10:00 am—YMCA Clay Camp
To register go to www.arthritis.org and enter your zipcode. Then click on “Arthritis Walk.”
NW OHIO
NW Ohio’s Camp Busy Bee
The annual summer camp for children in Northwestern Ohio who have arthritis
has just completed its tenth season.
Held at Camp Miakonda the weekend of July 20, twenty youth enjoyed such
activities as swimming, archery, a scavenger hunt, navigating an obstacle
course and various crafts. The delicious food supplied by the camp cooks was
supplemented by healthy and semi-healthy (and not at all healthy, but I won’t
tell) snacks and treats supplied by local merchants. When a poll was taken near
the end of camp, it was decided that must-haves again next year are the
Karaoke night, entertainment by Fumbles the Clown and the large and ever so
hot bonfire.
Camp Busy Bee is funded through the generous donation of the Alpha Omicron
Pi alumnae chapter with great support from many area businesses.
GALA
save the date
7th Annual Casino Ball | October 13
The Northwestern Ohio Region of Arthritis Foundation is proud to announce our
7th annual Casino Ball. The event will be held on Saturday, October 13 at the
Belmont Country Club in Perrysburg and promises to be an entertaining night
out! Guests are encouraged to visit the authentic casino gambling tables and
dance late into the night while browsing the silent auction tables and listening
to the cool jazz sounds.
Proceeds raised through the Casino Ball will help fund the Arthritis Foundation’s
local programs and services for more than 600,000 people in our area who
are affected by arthritis. We will be auctioning some very special pieces of
art completed by local and national artists. One of the key pieces we are very
excited and honored to receive for auction is made by renowned artist Anne
Cunningham of Wilmington, NC. This will be a grand evening and we hope you’ll
be part of this excitement.
Please call Cherie at (419) 290-3145 for ticket and sponsorship information.
See page 14 for the listing of Public Education Seminars.
Each December, participants nationwide don festive costumes, tie silver
bells on their shoelaces and follow
the Jingle Bell Run for Arthritis‚ route.
In the 5K run or walk, individuals will
compete for fun prizes while teams
will compete for the coveted traveling trophy, awarded to the top fundraising team.
The Northwest Ohio Jingle Bell Run
will take place in Toledo, Fremont,
Findlay, and Defiance. The cost of
online registration is $20. You must
be registered online no later than
November 29 to qualify for this discount. Day of registration is $30.00. If
you need ideas on how to raise funds
for this fun run, and to register go
to arthritis.org. The schedule of area
races is as follows:
Toledo: Saturday, Dec. 1
The Franciscan Center at
Lourdes College in Sylvania
Registration begins at 7:30 with
the race beginning at 9:00 am.
Findlay: Saturday, Dec. 1
St. John’s Lutheran Church
1701 Tiffin Avenue
Registration begins at 7:30 with
the race beginning at 9:00 am.
Defiance: Saturday, Dec. 8
Defiance County YMCA
Registration begins at 7:30 with
the race beginning at 9:00 am.
Fremont, Saturday, Dec. 15
Fremont Recreation Center
600 St. Joseph Street
Registration begins at 8:30 with
the race beginning at 10:00 am.
fall 2007
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There are 300,000 children who have
juvenile arthritis in the United States.
This conference is a fun and exciting
way to meet families and young
adults who have also been affected
by juvenile arthritis. Expect to leave
empowered after learning how to
cope with the day-to-day challenges
of living with a chronic disease. Read on
to see first hand how this conference
impacted a Chicago young adult.
KIDS CORNER
­10
arthritis update
The four-day conference was not only
educational, it was also fun. I had
a blast hanging out and getting to
know the other young adults. This was
my first time meeting anyone my age
who’s going through the same things.
I felt totally in my element while at the
conference because we were all coming from a similar place and working
towards a similar goal—striving to not
only cope, but to live a happy life while
struggling with chronic pain. I met
some amazing people who not only
gave me encouragement, but also
inspiration. I can’t wait until I see my
conference friends again! Although I
learned so much useful information in
the classes, I believe that the people
I met and the connections I made was
definitely the highlight of my trip.
ARTHRITIS
EDUCATION
PROGRAM
FOR CHILDREN
Get involved in educating our youth
about arthritis, either K–6th grade or
high school students at any school at
your convenience! An informal training will be offered at the chapter
office in order to familiarize you with
the curriculum.
Topics include:
n A
rthritis education
n D
isability awareness
n H
ealth education
n C
haracter education
If you are interested in becoming
trained as a volunteer for the project,
or if you would like to receive additional information, please contact:
Tarisha Washington
(800) 735-0096 x14
[email protected]
I can’t thank you all enough for this
great opportunity!
Brittany Montgomery
Mark your calendar for the 2008
Juvenile Arthritis Conference, which
will be held from July 9–13, 2008, in
Costa Mesa, CA. Please call (800) 7350096 x 14 for more information.
MAKE NEW
FRIENDS!
Sign up for the nationwide Pen Pal
Program, and you will be paired with
another girl or a boy with arthritis
from another state. Call (800) 7350096 to request an application or for
more information.
Advocacy Update: Fall 2007
REMEMBER: For the latest advocacy
news, go to the Advocacy Section
of the Arthritis Foundation, Greater
Chicago Chapter website:
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o to: www.arthritis.org keyword:
Chicago
n C
lick on: Advocacy Program
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he website will have the most
up-to-date information available
on advocacy activities at the state
and national level—find out how
YOU can help!
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he website is updated frequently,
so check back often!!
Illinois Healthcare
Access Network
As State budget dollars become
scarcer, the threat of more access
restrictions becomes a greater possibility. Medicaid budgets all over
America are stretched to the limit.
The effect of this squeeze often has
the most drastic effects on those least
able to defend themselves—those
who rely on the assistance of the
public healthcare system. The Illinois
Healthcare Access Network (IHAN) has
been formed to serve as a resource
network to keep its partners informed
of threats to quality healthcare access.
Members share a network of best
practices for ensuring quality of care.
The Arthritis Foundation, Greater
Chicago Chapter, is one of IHAN’s
partner organizations.
For more information about Illinois
Healthcare Access Network, please
contact IHAN’s Coordinator, Rochelle
Dodge, at [email protected].
Arthritis &
Exercise Forum
Join the Arthritis Foundation at an
upcoming Arthritis and Exercise
Forum. Hear from a rheumatologist,
physical therapist and exercise
instructor on physical activity, joint
protection and proper footwear. An
introduction by a local legislator and
an exercise demonstration are also
part of the program.
Upcoming Forum:
Arthritis & Exercise Forum
with State Representative
Beth Coulson (17th District)
Friday, October 12
10am–noon
Location: TBA (North Shore)
To register, please visit www.arthritis.
org or call (800) 735-0096.
Tell Us Your
Personal Story
To keep the importance of the
Arthritis Prevention, Control & Cure
Act on the forefront of everyone’s
minds, we ask that you submit personal stories.
WHO: You! Write a short personal
story about how arthritis affects your
life and why the Arthritis Prevention,
Control & Cure Act is important
legislation.
WHAT: Personal stories are just that
—a first-person account of someone who lives with arthritis, or a
parent who has a child with arthritis. Please remember to include the
mailing address of the author so the
letter can be delivered to the correct
Member of Congress. If possible, a
picture should be included to help
give a face to the story.
Office of the Arthritis Foundation, so
that your story is delivered to your
Members of Congress.
Please mail your Personal Story to:
Arthritis Foundation
Greater Chicago Chapter
Advocacy
29 E Madison St, Ste 500
Chicago, IL 60602
Via e-mail: [email protected]
Example excerpt of a personal story:
I am a high school senior. I was diagnosed with polyarticular juvenile rheumatoid when I was 13. I went from being on
several school sports teams to not being
able to tie my own shoes. I have been one
of the lucky ones who have found medications that help me get through my days.
That is not the case with everyone.
A couple of years ago I went in search of
answers to questions that I had about my
disease. I found the Arthritis Foundation.
They have helped me with so many
different areas of my life.
I believe that one person can make a
difference in our communities. For this
reason I will continue my advocacy efforts
raising awareness one person at a time.
Go to http://capwiz.com/arthritis/
home/ to find out if your Congressperson has signed on as a cosponsor
for the Arthritis Prevention, Control
and Cure Act!
WHY: Personal letters and visits by
constituents are what help Members
of Congress and their staff decide
what the important issues back at
home are. The more letters—the
larger the effect.
Send us your personal story, include
your full name and home address,
and we will work with the National
fall 2007
­11
Free Public Education Seminars
CHICAGO
Wednesday, Oct. 17
YOUR JOINTS, YOUR BONES &
MORE: WHAT YOU SHOULD KNOW
Wednesday, Oct. 10
Program 12:45–2:15 pm;
11:30 am–12:30 pm lunch.
The Inside Scoop on
Arthritis Treatments, Research,
and Helping Yourself
Linda Ehrlich-Jones, PhD, RN,
CS, Clinical Research Scientist,
Rehabilitation Institute of Chicago
Lunch will be provided, but requests
must be in by Fri. Oct. 5. Those who
register after that date will not be
guaranteed lunch.
Understanding Psoriatic Arthritis
Dr. Claudia Hernandez, Department
of Dermatology, University of Illinois
at Chicago
Mercy Hospital
2525 S. Michigan Avenue,
Auditorium
Chicago
Hyde Park Neighborhood Club
5480 S. Kenwood
Chicago
Parking across the street in the Bank
Financial parking lot.
Wednesday, Oct. 31
Hot Flashes—Breast Lump.
What Next?
Dr. Alejandra Perez-Tomayo,
Chief of Surgery, Mercy Hospital
Total Joint Replacements: The Facts
Behind the Marketing
Dr. David Manning, Orthopaedic
Surgeon, Assistant Professor
of Surgery, University of Chicago.
Osteoporosis: How Do You Know
if it Affects You?
Dr. Catherine Meyer,
Rheumatologist, Mercy Hospital
This program is supported by Biomet.
Pre-registration is mandatory
for ALL seminars. Register online
at www.arthritis.org keyword:
Chicago, or call (800) 735-0096.
SERIES OF 3 PROGRAMS
TO BE HELD AT:
Fourth Presbyterian Church
126 E. Chestnut, Anderson Hall
Program 9:30–11:30 am
Breakfast will be served at 9:00 am.
All programs are co-sponsored by the
Center for Whole Health.
Discounted parking at 900 N.
Michigan Avenue will be available
for $13.00. Tickets can be purchased
at the seminar during registration
check-in.
­12
arthritis update
Arthritis: 120 Different Forms.
What Do You Have?
Dr. Richard Keating, Rheumatologist,
University of Chicago
Exercise: What Kind and Is
There a Choice?
Julie Digovanna, PT, Illinois Bone
and Joint Institute, Chicago
Both programs listed above are
supported by Abbott.
Wednesday, Nov. 14
Protection From Stomach
Problems Due To Arthritis
Treatments: Risks & Benefits
Recognizing and Reducing the Risks
of NSAIDS in the UPPER GI Tract
Dr. John Pandolfino, Asst. Professor
of Medicine, Division of
Gastroenterology, Northwestern
University Feinberg School
of Medicine
Understanding LOWER GI Problems
and NSAID Injury
Dr Jay Goldstein, Professor of
Medicine, Vice Head for Clinical
Affairs, Dept. of Medicine, University
of Illinois at Chicago
The 10 Latest Advances in
Arthritis Treatments
Dr. Patrick Schuette, Rheumatologist,
Illinois Bone and Joint Institute,
Morton Grove
Financial support for this program is
provided by AstraZeneca.
KEYS TO YOUR HEALTH: A FORUM
FOCUSING PRIMARILY ON AFRICAN
AMERICAN & HISPANIC WOMEN
Saturday, Nov. 3
9:00–12:30 pm
Continental breakfast at 8:30 am.
Lunch at 12:30 pm.
Update on Heart Disease in
Women in 2007: What You Need
to Know Because Your Life May
Depend on It!
Dr. Eva V.Chomka, FACC, MAT,
FACP, ABHM. Cardiologist, Fellow at
the American College of Cardiology
and American College of Physicians.
Certified by the American Board
of Holistic Medicine, University of
Illinois at Chicago
Eat Your Pain Away: Foods that
Cause Inflammation
Marla Brodsky, RD, LD, CNSD,
Luscious Life Nutrition, Chicago
Osteoporosis: What You Should
Know About the Silent Disease
Dr. James Curran, Rheumatologist,
University of Chicago
Rheumatic Disease: What’s on the
Horizon Facing Minority Women?
Lecture will include discussion on
inflammatory arthritis, Lupus, Gout,
OA, RA and Fibromyalgia.
Frederick Brown Jr., MS, RN, APN,
ONC. Practitioner/Teacher, Rush
University and Rush College of Nursing
Menopause Madness
Dr. Cheryl Wolfe, OBGYN
Department, Mercy Hospital
This program is supported by Abbott and
co-sponsored by Mercy Hospital.
WHAT YOU SHOULD KNOW
ABOUT YOUR ARTHRITIS &
REPLACEMENT TREATMENTS
Friday, Nov. 9
12:00–2:00 pm
Box lunches picked up at 11:30 am.
Chicago State University
9501 S. King Drive, New Academic
Library, Sun Room, 4th Floor
Enter at 95th and St. Lawrence.
Take CSU Drive to Community Lane
and park in Lot A1.
Partial Knees and Minimally Invasive
Incisions…Fact or Hype?
Dr. Gregory Primus, Orland Park
Orthopedics
Are You Controlling Your Arthritis
or is Your Arthritis Controlling You?
Gayles Evans, Ph.D., Asst.
Professor of Library Science and
Communication Media, CSU
Sherelene A. Harris, Ed.D., Asst.
Professor of Reading and Elementary
Education, CSU
This program is supported by Biomet and
co-sponsored by Chicago State University.
NORTH SUBURBS
OH, THESE ACHING BONES!
This informative program will cover
treatment options for joint pain,
rheumatoid arthritis, and stretching
and strengthening information.
Friday, Sept. 21
9:00–11:30 am
Refreshments will be served at
8:30 am.
St. Alexius Medical Center, Rooms
B, C & D, 4th floor West
1555 N. Barrington Road
Hoffman Estates
Dr. David Trotter, Orthopaedic
Surgeon, Dr. Dina Dadahoy,
Rheumatologist, Tammy Marano,
Occupational Therapist
All speakers are on staff at St. Alexius
Medical Center, Hoffman Estates.
This program is co-sponsored by
St. Alexius Medical Center.
ARTHRITIS & PAIN MANAGEMENT:
THERE IS A LIFE AFTER ARTHRITIS
Tuesday, Oct. 16
7:00–8:00 pm
Refreshments will be served.
Northbrook Library, Auditorium
1201 Cedar Lane
Northbrook
Dr. Alfonso Bello, Rheumatologist,
Board Certified in both Rheumatology
and Pain Management, Clinical
Associate Professor of Medicine,
University of Illinois College of
Medicine at Chicago Illinois Bone
and Joint Institute
This program is supported by Abbott.
MEDICAL & SURGICAL
SOLUTIONS TO COMMON
ARTHRITIS PROBLEMS
Saturday, Oct. 13
9:00–11:30 am
Breakfast will be provided at
8:30 am.
Illinois Bone and Joint Institute
Conference Center
9000 N. Waukegan Road
Morton Grove
WHAT ARE YOUR TREATMENT
OPTIONS FOR ARTHRITIS PAIN?
Thursday, Oct. 18
6:30–8:00 pm
Dessert and beverages provided.
Hyatt Rosemont
6350 North River Road
Rosemont
Treatment for Severe Knee
This discussion will focus on the
anatomical differences in male
and female knees, sizing options,
technologies currently available,
and various patient demand levels.
Dr. Richard Hayek, Orthopaedic
Surgeon, Resurrection Hospital,
Chicago.
RA: Brave New World,
Brave New Treatments
Dr. Albert Immartino,
Rheumatologist, DuPage Medical
Group, Oakbrook Terrace
This program is supported by
DePuy Orthopaedics, a Johnson and
Johnson Company.
INFLAMMATORY ARTHRITIS:
RHEUMATOID & PSORIATIC
Tuesday, Oct. 23
7:00–8:00 pm
Refreshments will be served.
Warren Newport Public Library
224 N. O’Plaine Road
Gurnee
Dr. Chinyoung Park, Park
Rheumatology, Park City
This program is supported by Abbott.
New Surgical Approaches to
Arthritis in the Hand and Shoulder
Dr. Jeffrey Visotsky, Orthpaedic
surgeon, IBJI
Rheumatoid Arthritis and
Osteoarthritis: What’s the Diff?
Dr. Amanda Meyers,
Rheumatologist, IBJI
This program is co-sponsored by the Illinois
Bone and Joint Institute.
(program continued on next page)
fall 2007
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Free Public Education Seminars
(program continued from page 13)
TREATING YOUR ARTHRITIS: HOW
TO DO YOUR HOMEWORK & BE
YOUR OWN BEST ADVOCATE
Friday, Nov. 2
9:30–10:30 am
Breakfast will be provided
at 9:00 am.
The Levy Center, Gymnasium
300 Dodge
Evanston
Dr. Eric Ruderman, Assistant
Professor of Medicine, Division of
Rheumatology, Northwestern Feinberg
School of Medicine, Chicago
This program is supported by Abbott.
RHEUMATOID ARTHRITIS:
A LOOK INTO THE FUTURE
Wednesday, Nov. 7
7:00–8:00 pm
Refreshments will be served.
Skokie Public Library,
Rachmacher Room
5215 Oakton Street
Skokie
Dr. David Mael, Rheumatologist,
University Rheumatologists, Rush
North Shore Medical Center
SOUTH SUBURBS
YOUR ARTHRITIS & YOU
Monday, Sept. 24
6:30–8:00 pm
Heavy hors d’ouvres will be provided.
DJH Rheumatology Consultants
Oakview Community Center
4625 W. 111th Street
Oak Lawn
Dr. Manjari G. Malkani,
Rheumatologist,
DJH Rheumatology Consultants
This program is supported by Abbott.
ARTHRITIS: DO YOU KNOW
WHAT KIND YOU HAVE &
TREATMENT OPTIONS?
Tuesday, Oct. 2
9:00–10:00 am
Breakfast will be provided
at 8:30 am.
DoubleTree Hotel
5000 W. 127th Street
Alsip, IL
Dr. Cory Conniff, Rheumatologist,
Metro Rheumatology Associates,
Hinsdale
This program is sponsored by Abbott.
This program is supported by Abbott.
WESTERN SUBURBS
POINTS ON JOINTS:
WHAT’S NEW IN ARTHRITIS?
Wednesday, Oct. 24
9:30–10:30 am
Breakfast will be provided at 9:00 am.
Naperville Community Center
305 W. Jackson
Naperville
Dr Francis Lichon, Rheumatologist,
Naperville and Carol Stream
This program is supported by Abbott.
­14
arthritis update
TYPES OF ARTHRITIS & WHAT TO
DO ABOUT MANAGING THE PAIN
Saturday, Oct. 13
9:00–11:30 am
A buffet breakfast will be served
at 8:30 am.
Silver Lake Country Club
14700 S. 82nd Avenue
Orland Park
Pre-registration is mandatory
for ALL seminars. Register online
at www.arthritis.org keyword:
Chicago, or call (800) 735-0096.
Learning to Live with Arthritis:
What Are Your Options?
Dr. Richard Gainey, Rheumatologist,
Orland Park
Exercise and Arthritis:
Oil For Rusty Joints
Brian Smith Physical Therapist,
AthletiCo
New Developments in Hip and
Knee Replacement
Dr. Dan Weber, Keystone
Orthopaedics, Hazelcrest
This program is supported by Abbott
and Biomet.
NORTHWEST OHIO
Each educational lecture is given by
an arthritis expert at 6:30 pm, and
is followed by a short question and
answer period. Light refreshments
are served. There is no charge to
attend the lectures, but interested
parties are asked to register for each
individual one. Pre-register at www.
arthritis.org keyword Chicago, or by
calling (800) 735-0096.
Arthritis drugs, what
should i take?
Wednesday, Sept. 19
Central Park West Rehab
3130 Central Park West, Drive A,
Toledo, OH 43617
Russell Smith, RPh, MBA
Arthritis & your feet
Saturday, Oct. 6
9:00 am–1:00 pm (note different time)
Birchaven Village
Findlay, OH 45840
Michael Lindamood, MD
How to Relieve Arthritis
Back Pain
Tuesday, Oct. 16
St. Vincent Mercy Medical Center
2213 Cherry Street
Toledo, OH 43608
Ashok Biyani, MD
OPTIONS FOR TOTAL
JOINT REPLACEMENT
Thursday, Nov. 15
Heartland of Perrysburg
10540 Freemont Pike
Perrysburg, OH 43551
Space is limited. Call today. (800) 735-0096
www.arthritis.org
A member of the staff of West
Side Orthopedics will speak about
options for total joint replacement.
Local Arthritis
Research Update
Tuesday, Jan. 15, 2008
UT Health Science Campus
3015 Arlington Drive
Toledo, OH 43614
Randall Worth, PhD
ARTHRITIS & YOU
Wednesday, Feb. 20, 2008
UT Health Science Campus
3015 Arlington Drive
Toledo, OH 43614
Bashar Kahaleh, MD
Space is limited. Call today. (800) 735-0096
www.arthritis.org
OP & KYPHOPLASTY
Thursday, Mar.20, 2008
Oakleaf Village
4220 N Holland Sylvania Rd
Toledo, Ohio 43623
Andy Lassiter
IS YOUR CHI IN CHECK?
Tai Chi From the Arthritis Foundation is a specially designed exercise program to increase flexibility,
improve posture, reduce stress,
and enhance overall health and
well-being! Call (800) 735-0096 or
go to www.arthritis.org to find a
class near you.
Space is limited. Call today. (800) 735-0096
www.arthritis.org
fall 2007
­15
David Mekemson
Chair
Eric P. Gall, MD
Senior Vice Chair
Jody Cofoid
Treasurer
Robert P. Morgan
SECRETARY
Rowland Chang, MD, MPH
Immediate Past Chair
Tom Fite, CAE, CFRE
President and CEO
Sharon Tatom
mission
The mission of the Arthritis Foundation is to improve lives through leadership in
the prevention, control and cure of arthritis and related diseases.
The Greater Chicago Chapter serves the Illinois counties of Cook, DeKalb,
DuPage, Kane, Lake, McHenry and Will, and the Indiana counties of Lake and
Porter. It also now serves the 19 county region of Northwestern Ohio.
ARTHRITIS UPDATE Editor
Please feel free to contact
the chapter office for more
information:
Arthritis Foundation
Greater Chicago Chapter
29 East Madison, Suite 500
Chicago, IL 60602
(800) 735-0096
(312) 372-2080
[email protected]
www.arthritis.org
Non-Profit Org.
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