can rights cure? - PULP - University of Pretoria
Transcription
can rights cure? - PULP - University of Pretoria
CAN RIGHTS CURE? The impact of human rights litigation on South Africa’s health system Marius Pieterse Professor of Law, University of the Witwatersrand 2014 Can rights cure? The impact of human rights litigation on South Africa’s health system Published by: Pretoria University Law Press (PULP) The Pretoria University Law Press (PULP) is a publisher at the Faculty of Law, University of Pretoria, South Africa. PULP endeavours to publish and make available innovative, high-quality scholarly texts on law in Africa. PULP also publishes a series of collections of legal documents related to public law in Africa, as well as text books from African countries other than South Africa. This book was peer reviewed prior to publication. For more information on PULP, see www.pulp.up.ac.za Printed and bound by: BusinessPrint, Pretoria To order, contact: PULP Faculty of Law University of Pretoria South Africa 0002 Tel: +27 12 420 4948 Fax: +27 12 362 5125 [email protected] www.pulp.up.ac.za Cover: Yolanda Booyzen, Centre for Human Rights ISBN: 978-1-920538-27-9 © 2014 TABLE OF CONTENTS 1 Rights, health, courts and transformation 1.1 Introduction 1.2 The state of the South African health system 1.3 Content and dimensions of the right to health 1.3.1 1.3.2 International law South African constitutional law Health-related freedoms The right to equality Rights to non-medicinal determinants of health Rights to health care services 1.4 Justiciability of the right to health 1.5 Conclusion: Aims and objectives of this book 2 24 31 Rights through legislation/legislation through rights: Health law and policy in the Constitutional era 35 2.1 Introduction 2.2 Health care legislation in post-democracy South Africa and its impact on access to care 2.2.1 2.2.2 2.2.3 2.2.4 The Choice on Termination of Pregnancy Act 92 of 1996 The National Health Act 61 of 2003 The Medical Schemes Act 131 of 1998 Overview: Transformation through health legislation and policy? 2.3 Assessing legislative and executive compliance with constitutional health rights: The Constitutional Court's approach 2.4 Conclusion 3 1 1 5 10 10 16 Health rights litigation, individual entitlements and bureaucratic impact 3.1 Introduction 3.2 The health rights judgments and their aftermaths 3.2.1 3.2.2 3.2.3 3.2.4 3.2.5 3.2.6 3.2.7 Van Biljon v Minister of Correctional Services Soobramoney v Minister of Health (KwaZulu-Natal) Minister of Health v Treatment Action Campaign Minister of Health v New Clicks South Africa N v Government of the Republic of South Africa Law Society of South Africa v Minister of Transport Lee v Minister of Correctional Services 3.3 The impact of the health rights judgments on individual and collective struggles for access to health care services 3.4 The impact of rights-vindication on health system reform 3.5 Conclusion iii 35 38 38 42 47 49 51 56 59 59 62 62 63 65 70 73 75 77 79 84 89 4 Rights and resources: The limits of justiciability? 4.1 Introduction 4.2 Rights discourse, resource allocation and the unmasking of tragic choices 4.3 Rights as directives for resource allocation and rationing 4.3.1 4.3.2 Possible normative directives embodied by health-related rights in the South African Constitution Institutional obstacles to providing normative resource-related directives through the courts 4.4 Assessing the impact of South African human rights jurisprudence on health budgeting and financing 4.5 Rights and contemporary health financing policy debates 4.6 Conclusion 5 Rights, horizontality and regulation: facing the public/private divide 5.1 Introduction 5.2 Rights as impetus for private health sector regulation 5.3 Rights as parameters for private health sector regulation 5.3.1 5.3.2 Health care practitioners' freedom of occupational choice Patients’ right of access to care 5.4 Beyond regulation: Towards enforcing human rights obligations in the private health sector 5.5 Conclusion 6 Rights as restraints?: Balancing individual liberties and public health 6.1 Introduction 6.2 Assessing the human rights impact of public health policies 6.3 Public health and the South African Bill of Rights 6.4 Rights, limitations and the prevention of multi-drug resistant (MDR) and extreme drug resistant (XDR) tuberculosis 6.4.1 6.4.2 Adopting a human-rights framework to current laws, policies and practices aimed at MDR and XDR-TB prevention How not to apply a human-rights framework: Minister of Health, Western Cape v Goliath 6.5 Conclusion 93 93 95 100 102 107 109 119 123 125 125 129 132 137 139 143 149 151 151 156 159 167 167 171 174 177 BIBLIOGRAPHY iv CHAPTER 1 RIGHTS, HEALTH, COURTS AND TRANSFORMATION 1.1 Introduction The enforcement of a claim – an entitlement to health facilities, goods, and services as an asset of citizenship – itself has an effect on a claimant's individual sense of identity, as well as on the broader social meaning of health and, ultimately, our understanding of health systems.1 Rights are powerful and empowering. They enable individuals and marginalised groups within society to assert themselves against powerful entities in the public and private spheres and, thereby, to draw societal attention to their plight. Where the objects of rights include social goods or services, the rights further recast claims for access to such goods or services as moral and legal imperatives, rather than ‘mere’ cries for help.2 As such, rights at once impact on the manner in which society views delivery of social goods and services and demand accountability from those responsible for this delivery.3 Following from this, rights necessarily impact upon the structures and systems through which social goods and services are delivered, especially where the rights are legally enforceable against the architects and drivers of such systems and structures. Rights simultaneously present substantive 1 2 3 AE Yamin ‘Power, suffering and courts: Reflections on promoting health rights through judicialization’ in AE Yamin & S Gloppen (eds) Litigating health rights: Can courts bring more justice to health? (2011) 333 336-337. See PJ WiIliams ‘Alchemical notes: Reconstructing ideals from deconstructed rights’ (1987) 22 Harvard Civil Rights Civil Liberties Law Review 401 411-413, 416. I engage the socio-legal literature on the utility of rights discourse in more detail in M Pieterse ‘Eating socio-economic rights: The usefulness of rights talk in alleviating social hardship revisited’ (2007) 29 Human Rights Quarterly 796 801-803. See also the authorities cited there. See JC Mubangizi & BK Twinomugisha ‘The right to health care in the specific context of access to HIV/AIDS medicines: What can South Africa and Uganda learn from each other?’ (2010) 10 African Human Rights Law Journal 105 128-129; JP Ruger ‘Towards a theory of a right to health: Capability and incompletely theorized agreements’ (2006) 18 Yale Journal of Law & the Humanities 273 278. 1 2 Chapter 1 goals and outcomes towards which social delivery structures and systems must gear themselves, as well as yardsticks by which their achievement of these goals and outcomes can be measured, and mechanisms through which non-achievement of the goals and outcomes may be corrected.4 By doing this, rights have the power, over time, to significantly change the manner in which social delivery systems function.5 But this power is not uncontroversial. Where rights are enforced through the court system, they alter the balance of power within the state and cause tensions between courts and the legislative and executive branches of government over how, and from where, social delivery efforts are to be driven.6 Moreover, while judicial enforcement of rights has the real potential to deepen democracy through amplifying the voice of citizens in conversations over the satisfaction of their socio-economic needs,7 factors such as unequal access to courts, the power of social movements and interest groups which make use of the judicial process, as well as judges’ individual perspectives and value systems, may distort democratic processes and disrupt or destabilise the pursuit of democratic projects.8 One field in which the impact of rights-based litigation has been particularly controversial, is that of health. Around the world, there has been increased litigation invoking the right to health, and views differ as to whether this has led to greater enjoyment of this right or has assisted health systems in delivering its objects. In few places are these questions more 4 5 6 7 8 See S Gruskin & D Tarantola ‘Health and human rights’ in S Gruskin et al (eds) Perspectives on health and human rights (2005) 3 33-43. S Gloppen & MJ Roseman 'Introduction: Can litigation bring justice to health?' in Ely Yamin & Gloppen (n 1 above) 1-2. See D Brand ‘Socio-economic rights and courts in South Africa: Justiciability on a sliding scale’ in F Coomans (ed) Justiciability of economic and social rights: Experiences from domestic systems (2006) 207 225-227; Ely Yamin (n 1 above) 335; A Govindjee & M Olivier ‘Finding the boundary ‒ The role of the courts in giving effect to socioeconomic rights in South Africa’ (2007) 21 Speculum Juris 167 169-171; S Liebenberg Socio-economic rights: Adjudication under a transformative constitution (2010) 66-71; K McLean Constitutional deference, courts and socio-economic rights in South Africa (2009) 108, 113-114; M Pieterse ‘Coming to terms with judicial enforcement of socioeconomic rights’ (2004) 20 South African Journal on Human Rights 383 390-392, 417; KG Young ‘A typology of economic and social rights adjudication: Exploring the catalytic function of judicial review’ (2010) 8 International Journal of Constitutional Law 385 386. This is further discussed in section 1.4 below. See D Brand ‘Judicial deference and democracy in socio-economic rights cases in South Africa’ (2011) 22 Stellenbosch Law Review 614 622-626; C Cooper ‘South Africa: Health rights litigation: Cautious constitutionalism’ in Ely Yamin & Gloppen (eds) (n 1 above) 190 210; Pieterse (n 6 above) 392; M Pieterse ‘On “dialogue”, “translation” and “voice”: A reply to Sandra Liebenberg’ in S Woolman & M Bishop (eds) Constitutional conversations (2008) 331 336-337. Cooper (n 7 above) 193-194; S Gloppen ‘Social rights litigation as transformation: South African perspectives’ in P Jones & K Stokke (eds) Democratising development: The politics of socio-economic rights in South Africa (2005) 153 158-160; T Madlingozi ‘PostApartheid social movements and the quest for the elusive “new” South Africa’ (2007) 34 Journal of Law & Society 77 94-95; M Pieterse ‘Health, social movements and rightsbased litigation in South Africa’ (2008) 35 Journal of Law and Society 364 379-380. Rights, health, courts and tranformation 3 acute than in South Africa, where the objects of the right to health coincide with the government objective of transforming a severely inefficient and inequitable health system into one which promotes health effectively and which enables universal, needs-based access to quality health care. The need for health care reform in South Africa is stark and urgent, with crumbling health service delivery in a number of provinces currently raising the concern of human rights bodies and organisations.9 Amidst crisis management and a range of ad hoc efforts to strengthen different aspects of the health system, the state is in the process of radically reconfiguring the totality of the system, with a wide range of legislative and policy reforms over the last decade-and-a-half currently culminating in the formulation and implementation of a National Health Insurance system.10 These reform efforts have taken place against the background of a widely celebrated constitutional dispensation, which centres on a Bill of Rights entrenching a broad range of fully justiciable human rights, including several socio-economic rights. The Constitution of the Republic of South Africa, 1996 awards courts extensive powers of judicial review over legislative and executive action which, controversially, extends to review over compliance with the socio-economic rights in the Bill of Rights. This means that South African courts have a significant say over the course and effects of social policy processes, including the health system reforms alluded to above. The political tensions accompanying this fact are particularly acute at present, with the state recently having ordered an independent study on 'the transformation of the judicial system and the role of the judiciary in the developmental South African State', which purports to centre specifically on the effect of constitutional rights jurisprudence on the advancement of social transformation and on the separation of powers between the judiciary and the political organs of state.11 At this political juncture, then, this book considers and assesses the ways in which rights-based litigation has thus far impacted on the 9 10 11 On the breakdown of health services in the Eastern Cape, see Eastern Cape Health Crisis Action Committee Memorandum to MEC Sicelo Gqobana: About the crisis in Eastern Cape health (September 2013) available through http://www.echealthcrisis.org (accessed 6 May 2014). On the similar state of health services in Gauteng, see Section 27 & Treatment Action Campaign Monitoring our health: An analysis of the breakdown of health care services in selected Gauteng facilities (2013). On Mpumalanga, see South African Human Rights Commission Report in the matter between Democratic Alliance, Mpumalanga and the Department of Health, Mpumalanga File Ref MP/1213/1060 (December 2013). See further the discussion in section 1.2 below. See Department of Health, Republic of South Africa National health insurance in South Africa: Policy paper (2011) as well as section 1.2 and ch 4 below. Department of Justice and Constitutional Development, Republic of South Africa Discussion document on the transformation of the judicial system and the role of the judiciary in the developmental South African state (2012) 27-29. See also IM Rautenbach ‘Policy and judicial review ‒ political questions, margins of appreciation and the South African constitution’ (2012) Tydskrif vir die Suid-Afrikaanse Reg 20 20-21. 4 Chapter 1 operation and transformation of different features of the South African health system. Its aim is both to advance our understanding of this impact and to assess whether, and how, the manner in which health-related constitutional rights have been invoked by citizens and social movements, as well as the manner in which courts have interpreted and enforced these rights, have shaped it. Whilst indeed concerned with the transformation of the health system, the book is thus primarily an attempt to reflect upon the South African experience of judicially enforcing health-related rights. Accordingly, the book considers the effects of the health-related rights in the 1996 Constitution, and the litigation in which they have (directly or indirectly) been invoked, on a number of different features of the health system. These include the formulation and implementation of health laws and policies, the implementation of court orders which vindicate the right to health, processes of health resource allocation and rationing, the regulation of health care delivery in the private sector, and the promotion and protection of public health. Admittedly somewhat disparate, these subject areas have been chosen because they highlight different ways in which rights typically operate – as individual causes of action, as drivers of or catalysts for systemic change, as directive principles, as constraints on policy possibilities, and as enhancers of participatory democracy. Throughout, the aim of the book is to better understand how rights discourse and rights-based judicial review have altered the legal and policy landscape around health care service delivery and health system reform; how they have at once constrained and enabled it, opened it up for contestation, inserted patients' needs into the relevant processes and, importantly, how they have affected the system's ability to meet those needs. Out-and-out a desk-based study, the book draws upon and amalgamates a fairly broad cross-range of literature on the utility of rights discourse, the forms, limits and possibilities of judicial review, the recognition, interpretation and enforcement of socio-economic rights, the bureaucratic impact of judicial decision-making, the nature, functioning and flaws of the South African health system, and the regulation of the private sector. Sources consulted include academic writings, reported court decisions, health care legislation and policy documents, and reports by NGOs and human-rights bodies on the state of the health system. While often drawing upon the wealth of available international and comparative legal materials on these topics, the aim is mostly to present a South African perspective on the relevant issues, and preference is given to literature articulating a South African take on doctrines, problems and solutions that also occur internationally. In setting the stage for what is to follow, this introductory chapter first provides a brief overview of the state of the South African health system, the challenges it faces and the efforts that have been made to overcome these. Then, I cursorily discuss the content and dimensions of the right to Rights, health, courts and tranformation 5 health in international law and indicate the extent to which the various elements of the right have been embedded in the South African Constitution. Thereafter, I take a closer look at South African courts, who have been tasked with adjudicating disputes pertaining to the various aspects of this right, and whose judgments therefore impact on the functioning of the health system and on the political efforts to reform it. I briefly explain the extent of the courts’ constitutional review powers and trace the way in which they have thus far exercised these in socioeconomic rights cases. While focusing on the manner in which courts have walked the difficult institutional and political tightrope implied by these powers, this discussion also provides an introductory overview of the caselaw that forms the focal point of subsequent chapters. To conclude, the aims and objectives of these subsequent chapters are then introduced. 1.2 The state of the South African health system As with other aspects of our society, the shadow of Apartheid, and the inhumanity and inequality occasioned by it, continues to loom large over the South African health system. In the words of the South African Human Rights Commission: The South African health care system, prior to 1994, resembled the fragmented and failed system that Apartheid was. As such, the health care system was characterised by abject discrimination, unequal distribution of resources, unethical execution of responsibilities by health practitioners and large scale complicity in upholding the system of apartheid. A lack of coordination and lack of accountability was also common. Apartheid South Africa offered a co-existence of first-world and third-world health care services (often operating just metres apart) with the first-world experience being the almost exclusive preserve of whites.12 Fragmented, structurally deficient, overly focused on the health needs of white South Africans ‒ as mirrored, for instance, by the overconcentration of health facilities in urban areas and a disproportionate emphasis on tertiary over primary health care – and grossly inefficient, the health system bequeathed to the first democratically elected government in 1994 was simply unable to serve the needs of broader society.13 Despite several laudable reform efforts in the years since, this largely remains the case. 12 13 South African Human Rights Commission Report Public Inquiry: Access to Health Care Services (2008) 12. SAHRC (n 12 above) 12-14. For a detailed exposition of the state of the health system before and during apartheid, see HCJ van Rensburg ‘A history of health and health care in South Africa’ in HCJ van Rensburg (ed) Health and health care in South Africa (2ed 2012) 61 62-115. See further H Coovadia et al ‘The health and health system of South Africa: Historical roots of current public health challenges’ (2009) 374 The Lancet 817 820, 825-826; B Harris et al ‘Inequities in access to health care in South 6 Chapter 1 In particular, untenable racial and geographic disparities in access to health care services continue to linger, and have been exacerbated and reinforced by the bifurcation of the health system.14 The dying years of apartheid saw the large-scale privatisation of health care and the concomitant deregulation of the private health system, which gradually drew away health care professionals, and wealthier patients, from the public system.15 Today, the gulf between the cost and quality of health care service delivery in the private and public health sectors is staggering. By far the majority of resources spent on health in South Africa are spent in the private sector, which renders good-quality but exorbitantly expensive ‒ and, often, wasteful and unnecessary ‒ care. Accordingly, while it employs the majority of South Africa's health care professionals, the private sector serves only about a fifth of the population, almost all of whom have access to medical insurance. Given the structural nature of unemployment and poverty, such uneven access to private sector care continues to reflect the racial and class patterns of apartheid.16 The majority of poor and black patients, and the bulk of the burden of disease, thus currently fall to be dealt with by the public health care sector, which is severely battling to cope therewith. In addition to a serious shortage of human, financial, technological and infrastructural resources – at least partly occasioned by the overconcentration of such resources in the private sector17 ‒ the main challenge faced by the public health sector since the advent of the democratic era has been poor leadership in the Department of Health. This has manifested both politically – with the former, long-time Minister of Health, Dr Manto Tshabalala-Msimang, being embroiled in a number of political scandals, notably around her and then-President Thabo Mbeki's support of Aids denialists and concomitant opposition to anti-retroviral treatment for HIV – and operationally, with poor management, corruption, bureaucratic tangles, lack of human resource planning and numerous legal and regulatory deficiencies leading to the Department being severely dysfunctional.18 13 14 15 16 17 18 Africa’ (2011) 32 Journal of Public Health Policy S102 S103; Adila Hassim et al (eds) Health & democracy (2007) 12-3; C Ngwena ‘The historical development of the modern South African health-care system: From privilege to egalitarianism’ (2004) 37 De Jure 290 299-301; B Ruff et al ‘Reflections on health-care reforms in South Africa’ (2011) 32 Journal of Public Health Policy S184. Harris et al (n 13 above) S119. See Van Rensburg (n 13 above) 100-112. See NHI Policy Paper (n 10 above) 4-6 as well as Cooper (n 7 above) 191; Coovadia et al (n 13 above) 826-827; SAHRC (n 12 above) 7, 14, 57-58; Van Rensburg (n 13 above) 105-106. This is discussed in greater detail in ch 4 and 5 below. Hassim et al (n 13 above) 25-26. See S Benatar ‘The challenges of health disparities in South Africa’ (2013) 103 South African Medical Journal 154 155; Coovadia et al (n 13 above) 829-832; R Gaigher ‘The political pathology of health care policy in South Africa’ (2000) 32 Acta Academica 44 46; N Geffen Debunking delusions: The inside story of the Treatment Action Campaign (2010) 77; Hassim et al (n 13 above) 28-29; HCJ van Rensburg & MC Engelbrecht ‘Transformation of the South African health system: Post-1994’ in Van Rensburg (ed) (n 13 above) 121 165-166; S Woolman et al ‘Why state policies that undermine HIV Rights, health, courts and tranformation 7 As a result, the public health system has become unable to deliver care at the required level and scale. Recent reports on crises in public health care service delivery in three of South Africa’s provinces all detail human resource shortages, stock-outs of consumables and essential medicines, crumbling infrastructure, financial mismanagement, over and under spending, and poor working conditions in public hospitals. Moreover, all attribute these mainly to mismanagement, corruption, lack of managerial capacity and poor leadership.19 Tragically, all of this has coincided with South Africa becoming the epicentre of the worldwide HIV/AIDS pandemic that catapulted the South African health burden, which had already been disproportionately high due to the debilitating impact of poverty and inequality on population health status, to previously unimaginable levels.20 Not only have HIV infection rates in South Africa been amongst the highest of the world, but the epidemic has also come to epitomise the failures in political leadership alluded to above, with political and ideological denial of the cause, scale and effects of the epidemic severely hampering the health system's ability to respond to it.21 Moreover, the epidemic has highlighted the manner in which private-sector profiteering impacts on the health system's ability to provide access to health care, in that the system has had to negotiate exorbitant HIV treatment prices occasioned, amongst other factors, by pharmaceutical manufacturers’ strong patent rights and by the profit margins of retail pharma.22 Because of the severity of the burden of disease, the administrative and political shambles of the public health system and the misdistribution of health expenditure and resources between the public and private sectors, South Africa's health outcomes have not improved since 1994 and are much worse than can be expected of a state with its level of development, and, in particular, of a state which spends over 8,5 per cent of its GDP on 18 19 20 21 22 lay counsellors constitute retrogressive measures that violate the right of access to health care for pregnant women and infants’ (2009) 25 South African Journal on Human Rights 102 125. See Eastern Cape Health Crisis Action Committee (n 9 above) 2-5 (re the Eastern Cape); Section 27 & Treatment Action Campaign (n 9 above) 4, 9-29 (re Gauteng); SAHRC (n 9 above) 31-33, 37-38 (re Mpumalanga). On the scale and impact of the South African HIV epidemic, see Hassim et al (n 13 above) 26-27; Pieterse (n 8 above) 365 and authorities cited there; N Redelinghuys ‘Health and health status of the South African population’ in Van Rensburg (ed) (n 13 above) 237 276. See Geffen (n 18 above) 1-4, 193-196; M Heneke 'An analysis of HIV-related law in South Africa: Progressive in text, unproductive in practice' (2009) 18 Transnational Law & Contemporary Problems 751 771-773; C Kenyon 'Cognitive dissonance as an explanation of the genesis, evolution and persistence of Thabo Mbeki's HIV denialism' (2008) 7 African Journal of AIDS Research 29; Pieterse (n 8 above) 366-369 and authorities cited there; Van Rensburg & Engelbrecht (n 18 above) 173-174; as well as ch 3 below. Hassim et al (n 13 above) 27-28; M Pieterse ‘The legitimizing/insulating effect of socio-economic rights’ (2007) 22 Canadian Journal of Law & Society 1 5 and authorities cited there. 8 Chapter 1 health, which is above WHO minimum recommended levels.23 In particular, South African infant-, under 5- and maternal mortality rates are incommensurate to this, a fact pointing to the reality that the overall health system is failing to serve the needs of the populace.24 The failures of the health system have spilled over to many other aspects of South African life and have caught a great many South Africans in a debilitating and dehumanising cycle of ill health and poverty.25 Legally, courts have taken judicial notice of the shortcomings of the public health system and its impact on poor and marginalised South Africans in a variety of contexts, ranging from the impact of substandard care on the prognoses of survivors of violent crime and of motor vehicle accidents,26 to the impact of the poor state of prison health care on, for instance, criminal sentencing and parole.27 Overall, the poor state of the health system has become one of the major impediments to the advancement of South African society. It has also led to the rise of a large and active civil society in the field of health, spearheaded by the Treatment Action Campaign (TAC), arguably postapartheid South Africa’s most prominent and successful social movement. Together with its allies, the TAC has through the years used a wide range of legal and extra-legal strategies in attempting to improve the quality of public health care, especially for people with HIV and AIDS. These 23 24 25 26 27 NHI Policy Paper (n 10 above) 7; Coovadia et al (n 13 above) 817-818, 828; Gaigher (n 18 above) 47; Harris et al (n 13 above) S103; Hassim et al (n 13 above) 85; DE McIntyre et al ‘Health care financing and expenditure: Post-1994 progress and remaining challenges’ in Van Rensburg (ed) (n 13 above) 433 433; Pieterse (n 22 above) 4; Redelinghuys (n 20 above) 265-266; Ruff et al (n 13 above) S190; Van Rensburg & Engelbrecht (n 18 above) 175. Pieterse (n 22 above) 4. For recent analysis of maternal and child mortality figures, see N Majoe ‘Health and welfare’ in J Kane-Berman (ed) South Africa Survey 2009-2010 (2010) 467 470-480. On the structural and cyclical nature and effects of ill health and poverty see, for instance, C Barker The health care policy process (1996) 119-120; M Blaxter ‘The significance of socioeconomic factors in health for medical care and the National Health Service’ in D Blane et al (eds) Health and social organization: Towards a health policy for the twenty-first century (1996) 32 33-34; S Liebenberg & M O’Sullivan ‘South Africa’s new equality legislation: A tool for advancing women’s socio-economic equality?’ (2001) Acta Juridica 70 70-71. In relation to motor vehicle accidents, see Law Society of South Africa v Minister of Transport 2011 (1) SA 400 (CC) paras 91-100. In relation to victims of violent crime, see S v Tembani 2007 (1) SACR 355 (SCA) paras 27-29; P Carstens ‘Judicial recognition of substandard medical treatment in South African public hospitals: The slippery slope of policy considerations and implications for liability in the context of criminal medical negligence’ (2008) 23 SA Public Law 168 173-174, 176-178, 180. See, for example, Minister of Correctional Services v Lee 2012 (3) SA 617 (SCA) para 11; Stanfield v Minister of Correctional Services 2004 (4) SA 43 (C) as well as cases discussed by C van Wyk ‘The impact of HIV/AIDS on bail, sentencing and medical parole in South Africa’ (2008) 23 SA Public Law 50 54-55. Rights, health, courts and tranformation 9 strategies have often centred on the health-related socio-economic rights guaranteed by the 1996 Constitution.28 Against this political background, successive governments have attempted to rehabilitate the Department of Health, overcome the fragmentation of the health system and reduce disparities in health care service provision.29 As early as 1997, the National Department of Health published a White Paper on the Transformation of the Health System in South Africa, which envisaged the alignment of the health system with human rights principles, its structural reconfiguration and its reorientation towards the delivery of primary health care.30 Subsequently, a range of legislative and policy measures were adopted over the years, addressing issues such as the regulation of medical schemes, community service for medical and pharmaceutical science graduates, pharmaceutical procurement and price regulation processes, the provision of mental health care services and discrimination in the health sector. Most significantly, 2003 saw the long overdue passing of the National Health Act 61 of 2003, which finally provided a rights-based framework for the structure and functioning of the entire health system.31 Yet, these developments have been cumulatively unable to address the main structural deficiency of the health system – the discrepancies in access to care occasioned by the untenable gap between its private and public tiers. Indeed, some of the measures taken have arguably served to entrench this gap. Clearly, more radical structural reform, especially of the manner in which health expenditure is channelled and health services are financed is required.32 Such reform is underway. In recent years, significant progress has been made towards establishing and implementing a National Health Insurance system for South Africa, with draft policies having been published and a gradual, phased implementation process having been launched. The mooted National Health Insurance system aims towards strengthening the public health system, co-opting the private system in delivering essential health services to the public and establishing a mandatory, universal insurance system aimed at providing universal, needs-based access to health care for all South Africans, based on 28 29 30 31 32 On the origins and activities of the TAC and it's allies see, for instance, Geffen (n 18 above) 48-77; M Heywood ‘Shaping, making and breaking the law in the campaign for a national HIV/AIDS treatment plan’ in Jones & Stokke (n 8 above) 181-212; Madlingozi (n 8 above) 87-88; M Mbali ‘The Treatment Action Campaign and the history of rights-based, patient-driven HIV/AIDS activism in South Africa’ in Jones & Stokke (n 8 above) 213-243; Pieterse (n 8 above) 368-369. For more detail on the political health service reform agenda see Van Rensburg & Engelbrecht (n 18 above) 121-122. RSA National Department of Health White Paper on the Transformation of the Health System of South Africa (1997). These developments are discussed in greater detail in ch 2 below. NHI Policy Paper (n 10 above) 5-6; SAHRC (n 12 above) 7, 58; Section 27 & Treatment Action Campaign (n 9 above) 9-16. 10 Chapter 1 principles of social solidarity, equity, effectiveness, appropriateness, affordability, efficiency and the right of access to health care.33 1.3 Content and dimensions of the right to health The extent to which rights can be used as political tools to effect structural change is obviously partially dependent upon the manner in which they are phrased in legal instruments. In South Africa, the content, outcomes and implementation of the legislative and policy processes alluded to above will ultimately be assessed against the legal standards set by the so-called 'right to health', as it finds expression in the South African Constitution. As elsewhere, South African health-related activism also centres on this right. In attempting to demarcate the normative possibilities inherent to the right to health, this subsection provides an overview of its legal content and implications. It does so, first, by looking at the manner in which the right is understood at international law, from which it originates. Thereafter, it locates the various constituent elements of the right in the provisions of the South African Constitution. 1.3.1 International law 3434 The classic formulation of the right to health in international law is found in the 1946 World Health Organisation (WHO) Constitution, the preamble of which proclaims that ‘the enjoyment of the highest attainable standard of health is one of the fundamental rights of every human being without distinction of race, religion, political belief, economic or social condition’. The preamble further defines ‘health’ as ‘a state of complete physical, mental and social well-being and not merely the absence of 33 34 NHI Policy Paper (n 10 above) 16-18. On the significance of the NHI for the South African health system and current progress towards its implementation, see McIntyre et al (n 23 above) 472-474; MP Matsoso & R Fryatt ‘National Health Insurance: The first 18 months’ (2012/2013) South African Health Review 21; Van Rensburg & Engelbrecht (n 18 above) 133-134. This subsection aims to tease out the constituent elements of the right to health through a cursory survey of the formulation of the right in leading international and regional human rights instruments. The aim is not to provide a detailed elaboration on the international law content and operation of the right, but simply to provide background for a discussion on the elements of the right that are protected in the South African Constitution. The focus here is on the formulation of the right in art 12 of the International Covenant on Economic, Social and Cultural Rights (ICESCR). Other formulations that influenced the assessment include those in the preamble of the WHO Constitution; art 12 of the UN Convention on Elimination of all forms of Discrimination Against Women (CEDAW); art 5(e)(iv) of the UN Convention on the Elimination of all forms of Racial Discrimination (CERD); art 24 of the UN Convention on the Rights of the Child (CRC); arts 11 and 13(1) of the European Social Charter (ESC); art 11 of the American Declaration on the Rights and Duties of Man (American Declaration); art 10 of the Additional Protocol to the American Convention on Human Rights in the Area of Economic, Social and Cultural Rights (San Salvador Protocol), art 16 of the African Charter on Human and Peoples’ Rights (African Charter) and art 14 of the African Charter on the Rights and Welfare of the Child (ACRWC). Rights, health, courts and tranformation 11 disease and infirmity’. Rather than a right to be healthy, what is proclaimed appears to be an equal right to share in the spoils of a legal, political and social environment that allows for health maximisation. As such, the right to health implicates the health promotion, health protection and health care provision arms of national health systems.35 In its General Comment on the content of the right to health enshrined in article 12 of the International Covenant on Economic, Social and Cultural Rights (ICESCR), the UN Committee on Economic Social and Cultural Rights (UNCESCR) explained that the right to health should be understood as encompassing a package of interrelated and mutually supporting rights that operate jointly to enable the achievement of the highest attainable standard of physical and mental health.36 This package comprises both health-related freedoms – such as rights of control over health and body; personal autonomy in the seeking of health care; input in health-related decision-making; reproductive freedom and freedom from torture, non-consensual medical treatment and medical experimentation – and health-related entitlements that afford citizens ‘the enjoyment of a variety of facilities, goods, services and conditions necessary for the realization of the highest attainable standard of health’, as well as ‘the right to a system of health protection, which provides equality of opportunity for people to enjoy the highest attainable standard of health’.37 The UNCESCR further affirmed that the right to health is underscored by a guarantee of equality and non-discrimination, which entails, first, that states must abolish and refrain from discrimination in health care policy and/or practices and, secondly, that they must eradicate substantive inequalities occasioned by unequal enjoyment of health rights. States should therefore endeavour to target and dismantle oppressive social structures that impact perniciously on the health status of vulnerable groups in society and should prioritise the satisfaction of the health-related needs of such vulnerable groups.38 35 36 37 38 Gruskin & Tarantola (n 4 above) 26-27. UNCESCR General Comment 14 The Right to the Highest Attainable Standard of Health (Art 12 of the Covenant) (2000) paras 1, 3-4, 7-9. UNCESCR General Comment 14 (n 36 above) paras 8-9. UNCESCR General Comment 14 (n 36 above) paras 12, 18-22, 25-27, commenting on art 12 read with arts 2(2) and 3 of the ICESCR. A right of substantive equality of access to health-related goods and services is also evident from CERD arts 2(1)(c), 5(e)(iv); CEDAW arts 12, 14(2)(b); CRC art 2; ESC art 13(2) and San Salvador Protocol arts 3, 10(2)(b)(f). See further UNCESCR General Comment 3 The Nature of States Parties’ Obligations (Art 2, para 1 of the Covenant) (1990) para 1; Principles 14, 37-39 of the Limburg Principles on the Implementation of the ICESCR (1987). For discussion of the ‘package’ of rights, see E Durojaye ‘Monitoring the right to health and sexual and reproductive health at the national level: Some considerations for African governments’ (2009) 42 Comparative International Law Journal of South Africa 227 233234; Gruskin & Tarantola (n 4 above) 12-13; Mubangizi & Twinomugisha (n 3 above) 108-109; M Mushariwa ‘The right to reproductive health and access to health-care services within the prevention of mother-to-child transmission programme: The reality on the ground in the face of HIV/AIDS’ in B Goldblatt & K McLean (eds) Women's social and economic rights (2011) 183 184. 12 Chapter 1 As to health-related entitlements, General Comment 14 regards the right to health as requiring, in the first instance, the existence of a health system, an overarching legislative and policy framework facilitating health protection and promotion, as well as a national health strategy and plan of action.39 More tangible individual entitlements to health-conducive social amenities – which the Committee derives primarily from an enumerated list of obligations in article 12 of the ICESCR – include a right to maternal, child and reproductive health services;40 a right to environmental health (including entitlements to healthy living and work environments, safe drinking water and adequate sanitation services);41 a right to public health protection through measures aimed at disease prevention, treatment and control;42 as well as a right to have access to health care facilities, goods and services.43 This latter entitlement is the one that is most relevant to citizens’ everyday interaction with the health system and, as such, requires elaboration. Treaty provisions typically do not define what is meant by ‘health care goods and services’, save for indicating that these relate both to physical and mental health. Several provisions, however, emphasise the provision of primary health care services, goods and facilities, in line with the WHO’s distinction between primary, secondary and tertiary health 39 40 41 42 43 44 UNCESCR General Comment 14 (n 36 above) para 8. Derived from ICESCR art 12(2)(a). See also CEDAW art 12(2); CRC arts 24(2)(a), 24(2)(d). Derived from ICESCR art 12(2)(b). See UNCESCR General Comment 14 (n 36 above) paras 4, 11, 15. On occupational health, see also ESC art 3; San Salvador Protocol art 7(e) as well as the many standards contained in conventions of the International Labour Organisation. On environmental health more broadly, see CRC art 24; American Declaration art 12; San Salvador Protocol arts 11, 12(1); ESC art 11(1), as well as the decisions of the African Commission on Human and Peoples’ Rights in Union Inter-africaines des Droits de l’Homme v Zaire Communication No 100/ 93; Social and Economic Rights Action Centre (SERAC) v Nigeria Communication (2001) AHRLR 60 (ACHPR 2001). Derived from ICESCR art 12(2)(c). See UNCESCR General Comment 14 (n 36 above) para 16. On related standards of health promotion and protection, see for instance WHO Ottawa Charter for Health Promotion (1986); ESC art 11; CRC arts 24(2)(c), (e)-(f); San Salvador Protocol arts 10(2)(c)-(e); African Charter art 16. See further ch 6 below. Derived from ICESCR art 12(2)(d). See also UN Charter arts 55(b), 62(1); Universal Declaration art 25; CRC art 24(2)(b); ESC art 13(1); CRC art 24(1); CERD art 2(1)(c); American Declaration art 12; African Charter art 16. See CRC art 24(2)(b); San Salvador Protocol art 10(2)(a); ACRWC arts 14(2)(b), (d). Primary health care aims to satisfy basic health needs through prevention and treatment services for commonly encountered medical conditions. Secondary health care involves prevention and treatment of less common conditions that require more specialised treatment, whereas tertiary health care refers to highly specialised medical interventions requiring advanced facilities, drugs and knowledge. See WHO Glossary of Terms (1984) paras 2-30, as well as a discussion by G Bekker ‘Introduction to the rights Rights, health, courts and tranformation 13 care.44 More broadly, General Comment 14 understands the right of access to health care services to require the provision of equal and timely access to basic preventative, curative, rehabilitative health services and health education; regular screening programmes; appropriate treatment of prevalent diseases, illnesses, injuries and disabilities, preferably at community level; the provision of essential drugs; and appropriate mental health treatment and care.45 The UNCESCR further stated that compliance with the right should be assessed with reference to the availability, accessibility, acceptability and quality of health care facilities, goods, and services. The standard of availability requires that particular treatment options as well as the personnel, facilities and medicines required to affect these are physically available, in sufficient quantities, in the health sector concerned. The standard of accessibility, in turn, demands that health care facilities, goods and services are physically and geographically accessible to all citizens and are within the financial means of all (implying an additional standard of affordability), whereas the standard of acceptability requires that health care facilities, goods and services are culturally appropriate and adhere to relevant medical ethics and standards. Finally, an entitlement to care of adequate quality requires that health services, goods and facilities are ‘scientifically and medically appropriate’, and implies further entitlements to access to trained medical professionals, scientifically approved and safe medication and medical equipment, as well as of safe drinking water and adequate sanitation at health care facilities.46 Like those imposed by other socio-economic rights, the obligations imposed by the international law right to health are not all immediately enforceable against states. Article 2.1 of the ICESCR demarcates the extent of state responsibility in terms of the right, by determining that states 44 45 46 concerning health care in the South African Constitution’ in G Bekker (ed) A compilation of essential documents on the rights to health care (2000) 1 9; S Nadasen Public health law in South Africa: An introduction (2000) 13; K Pillay ‘Tracking South Africa’s progress on health care rights: Are we any closer to achieving the goal?’ (2003) 7 Law, Democracy & Development 55 61; B Toebes The right to health as a human right in international law (1999) 247. UNCESCR General Comment 14 (n 36 above) para 17. The term ‘essential drugs’ refers to the WHO’s list of ‘essential drugs’, which includes medicines ‘of utmost importance, basic, indispensable and necessary for the health needs of the population’ that ‘should be available within the functioning health systems at all times in adequate amounts, in appropriate dosage forms, with assured quality and at a price that individuals and the community can afford’, and which have been selected ‘with due regard to disease prevalence, evidence on efficacy and safety, and comparative costeffectiveness’. DM Chirwa ‘The right to health in international law: Its implications for the obligations of state and non-state actors in ensuring access to essential medicine’ (2003) 19 South African Journal on Human Rights 541 554-555. UNCESCR General Comment 14 (n 36 above) para 12. See further AR Chapman ‘Core obligations related to the right to health and their relevance for South Africa’ in D Brand & S Russell (eds) Exploring the core content of socio-economic rights: South African and international perspectives (2002) 35 45; Durojaye (n 38 above) 251-254; Mushariwa (n 38 above) 188-189; Toebes (n 44 above) 287-288. 14 Chapter 1 must take deliberate steps, through all appropriate measures and to the maximum of their available resources, in order to achieve progressively the full enjoyment of socio-economic rights. Much institutional energy has been spent on clarifying this rather vague obligation. For instance, the UNCESCR has indicated that the standard of progressive realisation requires states to take ‘deliberate and concrete’ steps in an effort to ‘move as expeditiously and effectively as possible’ towards full realisation of the rights in the ICESCR. Moreover, the Committee regards ‘deliberately retrogressive measures’ – such as instances where a state does not take any measures aimed at progressive realisation, halts progressive realisation or delays the adoption of appropriate measures unreasonably – as being in violation of the standard. States are further regarded as being in violation of the ICESCR where rights remain unrealised despite resources for their realisation being available. They must also ‘strive to ensure the widest possible enjoyment of the relevant rights’ within prevailing resource constraints and prioritise expenditure aimed at satisfying the needs of the most vulnerable sectors of society.47 Furthermore, certain elements of socio-economic rights may be regarded as immediately enforceable. It has for instance been shown that the equality-guarantee underlying the protection of rights such as the right to health is immediately enforceable and operates unaffected by resourceavailability or progressive realisation.48 Due to their resonance with autonomy rights protected under the International Covenant on Civil and Political Rights – which does not contain a clause equivalent to article 2.1 – the same may be said for health-related freedoms. As to health-related entitlements, increased clarity on the enforceable dimensions of the right to health may be gained, first, from the UNCESCR’s elaboration on the obligations to respect, protect and fulfill the right. The obligation to respect the right to health ‘requires States to refrain from interfering directly or indirectly with the enjoyment of the right to health’ and is regarded as having been infringed, for instance, when access to services is arbitrarily denied to particular individuals or groups, or where access is outlawed or scaled back.49 The obligation to protect the right is understood as mandating the adoption of measures preventing third parties from infringing it, including measures regulating the prices of medicines and the delivery of health care in the private sector.50 The 47 48 49 UNCESCR General Comment 3 (n 38 above) paras 2, 9, 11-12. See also Limburg Principles 16, 21; Guidelines 14(e)-(f) of the Maastricht Guidelines on Violations of Economic, Social and Cultural Rights (1997). See Limburg Principle 35; Maastricht Guideline 11; UNCESCR General Comment 14 (n 36 above) para 30. UNCESCR General Comment 14 (n 36 above) paras 33-34. See also Limburg Principle 72; Maastricht Guidelines 14(a), 15(g). For further discussion, see Durojaye (n 38 above) 247-248; Toebes (n 44 above) 312-313, 316-326. Rights, health, courts and tranformation 15 obligation to fulfil the right is said, at a minimum, to embody immediately enforceable entitlements to the existence of a functioning health system, which includes protection and promotion of environmental and public health.51 Secondly, the UNCESCR has famously developed a ‘minimum core approach’ to the substantive rights guaranteed by the ICESCR, which entails the identification of minimum subsistence levels in relation to each right, which need to be satisfied across the board as a matter of priority, regardless of resource scarcity and other logistical difficulties.52 In General Comment 3, the UNCESCR stated that the minimum core of the right to health entailed delivery of ‘essential primary health care’.53 It subsequently provided a more detailed list of core obligations in General Comment 14. These are: (a) to ensure the right of access to health facilities, goods and services on a non-discriminatory basis, especially for vulnerable or marginalized groups; (b) to ensure access to the minimum essential food which is nutritionally adequate and safe, to ensure freedom from hunger to everyone; (c) to ensure access to basic shelter, housing and sanitation, and an adequate supply of safe and potable water; (d) to provide essential drugs, as from time to time defined by the WHO Action Programme on Essential Drugs; (e) to ensure equitable distribution of all health facilities, goods and services; (f) to adopt and implement a national public health strategy and plan of action, on the basis of epidemiological evidence, addressing the health concerns of the whole population …54 The General Comment also furnishes an additional list of obligations, considered as being ‘of comparable priority’ to minimum core obligations. These are: 50 51 52 53 54 UNCESCR General Comment 14 (n 36 above) paras 33; 35. See also para 51; Maastricht Guideline 15(d); Durojaye (n 38 above) 248; Toebes (n 44 above) 326-332. UNCESCR General Comment 14 (n 36 above) paras 33; 36-37, 52. See further Bekker (n 44 above) 14; Durojaye (n 38 above) 248-249; Toebes (n 44 above) 332-336. UNCESCR General Comment 3 (n 36 above) paras 10-12. See also Limburg Principles 25-28, 72; Maastricht Guideline 15(i); Chapman (n 46 above) 37. According to the WHO Declaration of Alma-Ata (1978), primary health care includes ‘promotion of food supply and proper nutrition; basic sanitation and safe water; provision of essential drugs and maternal and child care, including family planning; education regarding prevailing health problems; prevention and control of locally endemic diseases; appropriate treatment of common diseases and injuries; and immunization against major infectious diseases’. Bekker (n 44 above) 9. See also A Hendriks & B Toebes ‘Towards a universal definition of the right to health?’ (1998) 17 Medicine & Law 319 326; Nadasen (n 44 above) 12-14; Toebes (n 44 above) 283-284. UNCESCR General Comment 14 (n 36 above) para 43. 16 Chapter 1 (a) to ensure reproductive, maternal (pre-natal as well as post-natal) and child health care; (b) to provide immunization against the community’s major infectious diseases; (c) to take measures to prevent, treat and control epidemic and endemic diseases; (d) to provide education and access to information concerning the main health problems in the community, including methods of preventing and controlling them; (e) to provide appropriate training for health personnel, including education on health and human rights.55 Overall, it appears that the minimum core of the right to health affirms the importance of certain entitlements forming part of the health rights package – such as entitlements to equality and non-discrimination and to the adoption of a public health strategy – while indicating essential elements of others. In particular, the core of the right to health care services, goods and facilities may be understood to encompass the provision of essential drugs, reproductive and child health care services and immunisation against infectious diseases, whereas core aspects of nonmedicinal determinants of health should similarly be prioritised. 1.3.2 South African constitutional law South Africa has acceded to some, though not all, of the international treaties on which the above exposition of the content and dimensions of the right to health was based. Importantly, Cabinet indicated in October 2012 that it would recommend that Parliament ratify the ICESCR, which contains the most authoritative formulation of the right.56 But, beyond specific treaty obligations, the understanding of the right to health at international law must influence the manner in which the right and its accompanying obligations are understood in the context of the Constitution. According to section 39(1) of the Constitution, courts must promote the underlying values of an open and democratic society, must take international law into account and may also have regard to foreign law when interpreting rights in the Bill of Rights. Section 233 of the Constitution further determines that ‘when interpreting any legislation, every court must prefer any reasonable interpretation of the legislation that is consistent with international law over any alternative interpretation that is inconsistent with international law’. This subsection therefore aims to 55 56 UNCESCR General Comment 14 (n 36 above) para 44. These lists are discussed in more detail by Bekker (n 44 above) 15-16; Chapman (n 46 above) 49-50, 54; Durojaye (n 38 above) 239; K Pillay ‘South Africa’s commitment to health rights in the spotlight: Do we meet the international standard?’ in Brand & Russell (n 46 above) 61 65-66. See ICESCR Ratification Campaign Driver Group ‘South Africa to Ratify International Socio-economic Rights Covenant’ NGO Pulse 12 October 2012 http:// www.ngopulse.org (accessed 15 May 2014). Rights, health, courts and tranformation 17 align its understanding of the ambit and scope of relevant South African constitutional provisions to corresponding elements of the ‘health rights package’ in international law. The 1996 Constitution does not contain a broad, all-encompassing 'right to health' provision, such as is found in international law. However, all elements of the right to health exposited above enjoy constitutional protection. The Bill of Rights contains a number of different provisions aimed at promoting the realisation of different aspects of the right to health, which ought to be read together when ascertaining the extent of health-related protection awarded by the Constitution.57 These are set out forthwith. Health-related freedoms A range of health-related freedoms are protected in terms of section 12(2) of the Constitution, which determines: Everyone has the right to bodily and psychological integrity, which includes the right (a) to make decisions concerning reproduction; (b) to security in and control over their body; and (c) not to be subjected to medical or scientific experiments without their informed consent. Section 12(2)(a) explicitly guarantees reproductive freedom, and may be understood to require, first, that legal and other obstacles to exercising choices relating to procreation – such as choices pertaining to the use of contraception or to termination of pregnancy – are removed and, secondly, that persons (especially women) are afforded meaningful access to reproductive health care facilities, goods and services.58 The remainder of section 12(2) may be viewed as embodying, amongst other interests, a right to meaningful participation in health-related decision-making. Section 12(2)(c) explicitly entrenches a right not to be treated without consent in the context of medical experimentation. More broadly, the phrase ‘security in and control over [the] body’ in section 12(2)(b) may be interpreted, in accordance with the common law understanding of physical integrity, as being aimed at protecting individual 57 58 Bekker (n 44 above) 1-2; D Bilchitz ‘Health’ in S Woolman et al (eds) Constitutional law of South Africa (2ed) ch56A 5; Chapman (n 46 above) 35-36, 51; Cooper (n 7 above) 192-193; Hassim et al (n 13 above) 9; Mubangizi & Twinomugisha (n 3 above) 115. See JM Berger ‘Taking responsibilities seriously: The role of the state in preventing transmission of HIV from mother to child’ (2001) 5 Law, Democracy & Development 163 166-168; C Ngwena ‘Access to health care as a fundamental right: The scope and limits of section 27 of the Constitution’ (2000) 25 Journal for Juridical Science 1 9. 18 Chapter 1 interests in ‘bodily autonomy and self-determination’, including individual control over physical and mental health status. Read together, subsections 12(2)(b) and (c) therefore appear to award a right to patients to participate in decisions concerning their health and to prohibit medical interventions without their informed consent.59 The right to equality The equality component of the right to health primarily finds protection under section 9 of the Constitution. The guarantee of ‘equal protection and benefit of the law’ in section 9(1), as well as section 9(2)’s determination that the right to equality encompasses the ‘full and equal enjoyment of all rights and freedoms’, indicate that the Constitution envisages equal access and enjoyment of socio-economic amenities, including health-related goods, services and facilities. The state is accordingly tasked with the programmatic eradication of lingering inequalities in such access and enjoyment. Many of these inequalities are occasioned by the operation of patriarchal social power-structures and their interaction with the remnants of the structural racial oppression of apartheid, which continue to lend definite racial and gender dimensions to discrepancies in access to healthconducive social amenities and to health care facilities, goods and services.60 The right to equality demands that the amelioration of these discrepancies receives urgent attention in a variety of policy-formulation and -implementation processes.61 But the more formal dimensions of the right to equality are also directly relevant to the achievement of the right to health. Read with the 59 60 61 See I Currie & J de Waal The Bill of Rights handbook (5ed 2005) 308-310; C Ngwena ‘Health care decision-making and the competent minor: The limits of selfdetermination’ (1996) Acta Juridica 132 134-135; M Pieterse ‘The interdependence of rights to health and autonomy in South Africa’ (2008) 125 South African Law Journal 553 558-560; R Thomas ‘Where to from Castell v De Greef ? Lessons from recent developments in South Africa and abroad regarding consent to treatment and the standard of disclosure’ (2007) 124 South African Law Journal 188 203-206; FFW van Oosten ‘Castell v De Greef and the doctrine of informed consent: Medical paternalism ousted in favour of patient autonomy’ (1995) 28 De Jure 164 166-167. For examples and discussion of these discrepancies see, for instance, E Buch ‘Discrimination in the area of health and health care’ in Christof Heyns et al (eds) Discrimination and the law in South Africa Volume 1 (1994) 152 152, 156; Chapman (n 46 above) 52; B Klugman ‘Mainstreaming gender equality in health policy’ (1999) Agenda AGI Monograph 48 50-51; Mushariwa (n 38 above) 185-187; Ngwena (n 58 above) 6-7; J Sarkin ‘A review of health and human rights after five years of democracy in South Africa’ (2000) 19 Medicine & Law 287 288. On the dictates of substantive equality in relation to socio-economic policy more generally, see S Fredman Human rights transformed: Positive rights and positive duties (2008) 175-180; S Liebenberg & B Goldblatt ‘The interrelationship between equality and socio-economic rights under South Africa's transformative Constitution’ (2007) 23 South African Journal on Human Rights 335 341-343; M Wesson ‘Equality and social rights: An exploration in light of the South African Constitution’ (2007) Public Law 748 749-753. Rights, health, courts and tranformation 19 Constitutional Court’s test for establishing violations of the right to equality,62 it would seem that the guarantee of equal protection and benefit of the law in section 9(1) of the Constitution may be used to demand the inclusion of applicants in the ambit of programmes conferring healthrelated benefits from which they have arbitrarily and/or irrationally been excluded, or to attain access to health care services where such access is arbitrarily or irrationally being denied. Similarly, where denial, exclusion or inequitable provision of health-related benefits results from unfair discrimination on one or more of the grounds listed in section 9(3) of the Constitution, or on another ground where discrimination on that ground ‘is based on attributes and characteristics which have the potential to impair the fundamental human dignity of persons or to affect them adversely in a comparably serious manner’,63 such denial, exclusion or inequitable provision will be unconstitutional unless it is found to be justifiable under the Constitution's general limitation clause.64 Rights to non-medicinal determinants of health As has been shown, the international law understanding of the right to health includes entitlements to environmental and occupational health as well as to several non-medicinal, health-conducive social goods. Rights to the majority of these amenities are also contained in the Constitution. Section 24(a) determines that ‘[e]veryone has the right ... to an environment that is not harmful to their health or well-being’. This openended right obviously guarantees environmental health and is phrased broadly enough to serve as a constitutional basis for a right to occupational health – working environment not harmful to health or well-being – and for rights to a variety of other non-medicinal, health-conducive social goods.65 Moreover, various rights to non-medicinal, health-conducive social goods are enshrined by the Bill of Rights. A right to have access to adequate housing is guaranteed by section 26, whereas subsections 27(1)(b) and (c) award rights to have access to sufficient food and water and to social security respectively. Children’s rights to shelter and basic social services find protection under section 28(1)(c), whereas section 29(1)(a) confers a right to basic education. With the exception of the latter 62 63 64 65 Laid down in Harksen v Lane 1998 (1) SA 300 (CC) paras 42-54. Harksen (n 62 above) para 54(b)(i). Non-listed grounds which would conceivably come into play in this context include health status, citizenship, geographical location, and socio-economic status. See P de Vos ‘Substantive equality after Grootboom: The emergence of social and economic context as a guiding value in equality jurisprudence’ (2001) Acta Juridica 52 64-65; Liebenberg & Goldblatt (n 61 above) 344-348; JC Mubangizi ‘Public health, the South African Bill of Rights and the socio-economic polemic’ (2002) Tydskrif vir die Suid-Afrikaanse Reg 343 346. E de Wet The constitutional enforceability of economic and social rights: The meaning of the German constitutional model for South Africa (1996) 119; Mubangizi (n 64 above) 345. 20 Chapter 1 two, these rights are all guaranteed subject to the proviso that the state must take reasonable measures to achieve their progressive realisation within its available resources. Rights to health care services The best known health-related provision in the Bill of Rights is section 27(1)(a) of the Constitution, which determines: 'Everyone has the right to have access to ... health care services, including reproductive health care'. Section 27(1)(a) clearly has an equality-threshold that forbids groupbased distinctions in the provision of health services. In this sense, section 27(1)(a) supplements the right to equality, by embodying an entitlement against arbitrary or unfair exclusion from the ambit of policies, laws and programmes which confer health-related benefits and by forbidding the inequitable provision of health care services.66 Beyond this threshold, section 27(1)(a) is unclear as to the kinds of ‘health care services’ it envisages, save for indicating that such services include reproductive health care. The right is certainly phrased broadly enough to be interpreted generously, so as to encompass claims to all services, goods and facilities aimed at securing the greatest attainable standard of physical and mental well-being. Depending on the context, therefore, section 27(1)(a) could be involved in claims for access to medical treatment for physical or mental health ailments, as well as claims for nonmedicinal health services such as services aimed at health protection and promotion, and the prevention and diagnosis of illness. When interpreted in line with the UNCESCR's understanding of the care-related aspects of the right to health, section 27(1)(a) may thus be understood as requiring the availability, accessibility, and acceptability of preventative, diagnostic and curative health care services of adequate quality on primary, secondary and tertiary levels.67 As is the norm with socio-economic rights in international law, the state's obligations in terms of the section 27(1)(a) right are qualified by section 27(2), which determines: 'The state must take reasonable legislative 66 67 68 See P de Vos ‘Grootboom, the right of access to housing and substantive equality as contextual fairness’ (2001) 17 South African Journal on Human Rights 258 265-266; Ngwena (n 58 above) 3, 7-9, 27. See UNCESCR General Comment 14 (n 36 above) paras 12, 17. See further Chapman op cit (n 46 above) 45; Ngwena (n 58 above) 8; Pillay (n 44 above) 60-62, 64. See D Bilchitz ‘Towards a reasonable approach to the minimum core: Laying the foundations for future socio-economic rights jurisprudence’ (2003) 19 South African Journal on Human Rights 1 18, 21; Chapman (n 46 above) 37; F Coomans ‘Reviewing implementation of social and economic rights: An assessment of the “reasonableness” test as developed by the South African Constitutional Court’ (2005) 65 Heidelberg Journal of International Law 167 191-192; P de Vos ‘So much to do, so little done: The Rights, health, courts and tranformation 21 and other measures, within its available resources, to achieve the progressive realisation of each of these rights [guaranteed in section 27(1)]'. Apart from limiting the extent to which the benefits implied by section 27(1)(a) may successfully be claimed at any given moment in time, section 27(2) also imposes specific obligations on the state.68 In particular, it determines that the state is obliged to adopt legal measures in order to achieve the progressive realisation of the right of access to health care, and that these measures must be reasonable. The obligations generated by section 27 must further be understood in conjunction with section 7(2) of the Constitution, which mirrors international law by determining that ‘the state must respect, protect, promote and fulfill the rights in the Bill of Rights’. Conventional wisdom has it that only the obligation to fulfil the right of access to health care services is subject to the limiting effect of the progressive realisation standard and resource limitation in section 27(2) of the Constitution, while the obligation to respect the right, as well as most aspects of the obligation to protect it, are more immediately enforceable.69 Infringements of the obligation to respect the right would typically occur where law or conduct intentionally deprives existing access to health services – by, for example, closing existing health care facilities or discontinuing the provision of particular services in State hospitals – or has the effect of denying or obstructing such access. The obligation could further be infringed by health-harming conduct – such as pollution or the marketing of unsafe pharmaceuticals – by the adoption of deliberately retrogressive measures or by non-compliance with the guarantee of equal access to health care services.70 The obligation to protect the right in turn requires that certain elements thereof should be enforceable against third parties who infringe them. For instance, claimants should generally be afforded appropriate remedies where they have received health care services which were not acceptable or of a reasonable quality. 68 69 70 right of access to anti-retroviral drugs post-Grootboom’ (2003) 7 Law, Democracy & Development 83 90-91; Ngwena (n 58 above) 22-23. See, for example, Chirwa (n 45 above) 559, 564; P de Vos ‘Pious wishes or directly enforceable human rights?: Social and economic rights in South Africa’s 1996 Constitution’ (1997) 13 South African Journal on Human Rights 67 92-94, 100; S Liebenberg ‘South Africa’s evolving jurisprudence on socio-economic rights: An effective tool in challenging poverty?’ (2002) 6 Law, Democracy & Development 159 178; FI Michelman ‘The Constitution, social rights and reason: A tribute to Etienne Mureinik’ (1998) 14 South African Journal on Human Rights 499 504. Sandra Liebenberg warns, however, that this conventional wisdom is grounded in legal liberalism's ideological preference for negative over positive rights and that insisting on privileging vested rights over positive obligations may be counter-transformative. See Liebenberg (n 6 above) 86-87; S Liebenberg ‘Grootboom and the seduction of the negative/positive duties dichotomy’ (2011) 26 SA Public Law 37. See, for instance, De Vos (n 69 above) 81; De Vos (n 68 above) 88-89; S Liebenberg ‘Violations of socio-economic rights: The role of the South African Human Rights Commission’ in P Andrews & S Ellmann (eds) The post-apartheid constitutions: Perspectives on South Africa’s basic law (2001) 405 411-414, 421; Liebenberg (2002) (n 69 above) 163. 22 Chapter 1 As to the obligation to fulfil the right, section 27(2)’s import of the international law 'progressive realisation' standard raises appears to invite an understanding of the right as engendering minimum core obligations similar to those identified by the UNCESCR at international level. It would certainly seem feasible to interpret section 27(1)(a) read with section 27(2) in this manner, which would mean that rights to access such core services, together with other, non-core services to which universal access has already been established through progressive realisation, are viewed as immediately enforceable.71 However, while the notion of minimum core ‘has the potential to play a valuable role in socio-economic rights adjudication by signalling the high priority which should be attached in social policy to ensuring that the urgent material needs of vulnerable and disadvantaged groups receive immediate attention’,72 opinions are divided as to whether it is best suited to the adjudication of the state's obligations in terms of section 27, in the specific context of the short, medium and long term challenges faced by the South African health system.73 Outside of section 27, three constitutional provisions award entitlements to particular health care services, goods or facilities. Perhaps significantly, none of them contains an internal modifier subjecting its enforcement to resource availability or progressive realisation. They may thus be read as emphasising particular priority dimensions of the right of access to health care services, in relation to specific categories of vulnerable persons. The first of these provisions, section 27(3), determines that ‘[n]o-one may be refused emergency medical treatment’. By virtue of its textual separation from section 27(1)(a) and the strong negative language it employs, it may be argued that section 27(3) operates free from the constraints posed by section 27(2) and that it may thus be immediately 71 72 73 See, for instance, De Vos (n 69 above) 97; Bilchitz (n 68 above) 11-13; M Pieterse ‘Resuscitating socio-economic rights: Constitutional entitlements to health care services’ (2006) 22 South African Journal on Human Rights 473 482-484; C Scott & P Alston ‘Adjudicating constitutional priorities in a transnational context: A comment on Soobramoney’s legacy and Grootboom’s promise’ (2000) 16 South African Journal on Human Rights 206 227. Liebenberg (n 6 above) 172-173. For the various arguments advanced in favour and against a minimum core interpretation of section 27, mostly in the context of the Constitutional Court’s rejection of the concept, see Bilchitz (n 68 above); D Bilchitz Poverty and fundamental rights: The justification and enforcement of socio-economic rights (2007) 178-237; K Lehmann ‘In defense of the Constitutional Court: Litigating socio-economic rights and the myth of the minimum core’ (2006) 22 American University International Law Review 163; S Liebenberg ‘Socio-economic rights: Revisiting the reasonableness review/minimum core debate’ in Woolman & Bishop (n 7 above) 303 309-319; Liebenberg (n 6 above) 163-173; Pieterse (n 71 above) 481-484, 488-491; Pieterse (n 7 above) 339-340; C Steinberg ‘Can reasonableness protect the poor? A review of South Africa’s socioeconomic rights jurisprudence’ (2006) 123 South African Law Journal 264 274-275; M Wesson ‘Grootboom and beyond: Reassessing the socio-economic jurisprudence of the South African Constitutional Court’ (2004) 20 South African Journal on Human Rights 284 303-305; KG Young ‘The minimum core of economic and social rights: A concept in search of content’ (2008) 33 Yale Journal of International Law 113. Rights, health, courts and tranformation 23 enforced against all entities that are able and qualified to render emergency care. Non-provision of emergency medical treatment would thus be constitutionally justifiable only in narrowly defined circumstances, in accordance with the general limitation clause in section 36 of the Constitution. Moreover, section 27(3) appears to imply a positive obligation on the state, to ensure that relevant medical services are available and are adequate to cope with the demands of medical emergencies.74 Second, under section 28(1)(c), children have the right to ‘basic nutrition, shelter, basic health care services and social services’. Section 28(1)(c) is narrower in scope than section 27(1)(a), since only basic health care services – which, it may be argued, should at least be understood as referring to primary health care services – are guaranteed. Accordingly, subject to section 36 of the Constitution, the subsection should be understood as imposing a priority obligation upon the state to provide children with primary health care services within the broader framework of progressive realisation.75 Finally, amongst a cluster of rights awarded to detained persons, section 35(2)(e) of the Constitution awards a right ‘to conditions of detention that are consistent with human dignity, including at least exercise and the provision, at state expense of adequate ... medical treatment’, whereas section 35(2)(f)(iv) awards a right to communicate with and be visited by a medical practitioner of the detainee’s choice. Detainees’ health interests have likely been singled out for protection because of their inability to procure access to medical services for themselves, and because of the various potential health hazards posed by incarceration.76 While clearly limited to the provision of such health services as are ‘adequate’ in light of the broader entitlement to dignified conditions of detention, it may be submitted that section 35(2)(e) encompasses at least an entitlement to receive primary health care services, non-compliance with which is capable of justification only in terms of section 36 of the Constitution, and that it entitles prisoners to have their 74 75 76 On these aspects of sec 27(3), see for instance Bilchitz (n 57 above) 17-19; Coomans (n 68 above) 170; De Wet (n 65 above) 117; Liebenberg (n 70 above) 415; Liebenberg (2002) (n 69 above) 163; M Pieterse ‘Enforcing the right not to be refused emergency medical treatment: Towards appropriate relief ’ (2007) 18 Stellenbosch Law Review 75 7879; Scott & Alston (n 71 above) 247-248, 251. See, for instance, De Vos (n 69 above) 87-88; De Wet (n 65 above) 106-107; Liebenberg (2002) (n 69 above) 162-163; M Pieterse ‘Children's access to health care services within and outside of the parent-child relationship’ (2010) 73 Tydskrif vir Hedendaagse Romein-Hollandse Reg 230 232-236; L Stewart 'Interpreting and limiting the basic socioeconomic rights of children in cases where they overlap with the socio-economic rights of others' (2008) 24 South African Journal on Human Rights 472 473. See Lee (n 27 above) para 11; M Pieterse ‘The potential of socio-economic rights litigation for the achievement of social justice: Considering the example of access to medical care in South African prisons’ (2006) 50 Journal of African Law 118 121; Van Wyk (n 27 above) 54-55. 24 Chapter 1 individual health needs considered in all decisions impacting on the duration, locality and conditions of their detention.77 78 1.4 Justiciability of the right to health78 While the primary task of translating the health-related rights in the Constitution into a lived reality for the people of South Africa rests with the legislature and executive,79 the rights are also justiciable, meaning that courts have a say in the manner in which the rights are understood and implemented. In terms of section 38 of the Constitution, anyone may approach a court for appropriate relief, either in their own interest, the interests of another or the public interest when a right in the Bill of Rights has been infringed or threatened. While courts are not the only institutions that have been constitutionally empowered to oversee the state’s compliance with health-related rights,80 they are both the most significant – in that the political branches of government are constitutionally obliged to heed their orders – and the most controversial. All over the world, there tends to be resistance to extending the power of judicial review over government action to include review based on social and economic rights. There are many reasons for this, most of which boil down to political tensions occasioned when unelected courts overturn, or otherwise ‘interfere with’, the policy decisions of the ‘democratic’ 77 78 79 80 See, for instance, GN Barrie ‘Access of incarcerated persons to medical treatment as a socio-economic right in South Africa’ (2008) Tydskrif vir die Suid-Afrikaanse Reg 120 122-123; De Wet (n 65 above) 110, 113; JC Mubangizi ‘The constitutional rights of prisoners in South Africa: A critical review’ (2002) 35 De Jure 42 48-49; Pieterse (n 76 above) 121-123. This subsection contains a very brief overview of some of the socio-economic rights decisions of the South African Constitutional Court. This overview is limited to the manner in which the Court has exercised its constitutional review powers. The facts, decisions and implications of those socio-economic rights cases which relate to the right to health are discussed in detail in ch 3 below, whereas ch 2, 3, 4 and 5 all interrogate different aspects of the judicial approach outlined here, in detail. On the extent of the task of the legislature and executive in this respect, see generally M Pieterse ‘Legislative and executive translation of the right to have access to health care services’ (2010) 14 Law, Democracy & Development 1; F Viljoen ‘National legislation as a source of justiciable socio-economic rights’ (2005) 6 ESR Review 6. The realisation of the right to health through legislation and policy in South Africa is the subject of ch 2 below. In terms of sec 184 of the Constitution, the South African Human Rights Commission (SAHRC) is inter alia empowered to insist that state departments report on the steps they have taken towards the progressive realisation of socio-economic rights, to investigate and report on alleged human rights violations and to conduct research and educate the public on human rights. On the SAHRC's role in relation to socioeconomic rights specifically, see, generally, C Heyns ‘Taking socio-economic rights seriously: The “domestic reporting procedure” and the role of the South African Human Rights Commission in terms of the new Constitution’ (1999) 32 De Jure 195; J Klaaren ‘A second look at the South African Human Rights Commission, access to information and the promotion of socioeconomic rights’ (2005) 27 Human Rights Quarterly 539; Liebenberg (n 70 above); DG Newman ‘Institutional monitoring of social and economic rights: A South African case study and a new research agenda’ (2003) 19 South African Journal on Human Rights 189. Rights, health, courts and tranformation 25 branches of government. This is said to strain the separation of powers doctrine, and to detract from principles of direct and representative democracy.81 Courts are further thought of as being ineffective in reforming socio-economic policy, in that they lack the technical and financial expertise necessary to decide intricate matters of social policy, and also do not have the institutional clout or manpower to ensure that their judgments are heeded.82 In relation to the right to health specifically, it is often pointed out that courts lack the medical and scientific knowledge to decide on diagnosis, suitable treatment options and on whether particular treatment is necessary in a specific case.83 Health and other social policy decisions are further regarded as being polycentric, in that the consequences of such decisions are felt in multiple, unforeseen contexts. Because the scope of litigation is necessarily limited, courts are said to be inappropriate fora for taking such decisions.84 But, apart from several of these concerns being overstated,85 there are also distinct advantages to justiciability. Courts are expert legal interpreters and are thus well placed to flesh out the content of socio-economic rights and to apply them in concrete contexts. They are further independent, impartial and even-handed deliberative fora, with expertise in solving disputes and balancing competing interests. Through exercising the power of judicial review, they enhance deliberative and participatory democracy, by holding the legislature and executive accountable for meeting their constitutional commitments and by forcing them to take note of, and engage with, citizens’ rights claims.86 The Constitution requires of courts faced with adjudicating socioeconomic rights claims to flesh out the content of the rights in question 81 82 83 84 85 86 In the South African context, these objections to judicial involvement in socioeconomic rights matters are critically discussed by, for instance, Brand (n 6 above) 225226; Liebenberg (n 6 above) 63-66; C Mbazira Litigating Socio-economic rights in South Africa: A choice between corrective and distributive justice (2009) 5-6, 27-32; McLean (n 6 above) 108, 111-114; Pieterse (n 6 above) 390-392. In the South African context, see Brand (n 6 above) 225; Liebenberg (n 6 above) 72. Insofar as they relate to the budgetary dimensions of socio-economic rights, these issues are discussed in more detail in ch 4 below. The notion of polycentricity derives, of course, from the seminal work of Lon Fuller (see LL Fuller ‘The forms and limits of adjudication’ (1978) 92 Harvard Law Review 353). For appropriation in the South African constitutional context, see C Ngwena ‘Access to health care and the courts: A note on Minister of Health v Treatment Action Campaign’ (2002) 17 SA Public Law 463 470; M Pieterse ‘Health care rights, resources and rationing’ (2007) 124 South African Law Journal 514 529-530; Scott & Alston (n 71 above) 243. See further SB Shah ‘Illuminating the possible in the developing world: Guaranteeing the human right to health in India’ (1999) 32 Vanderbilt Journal of Transnational Law 435 448-449. See Liebenberg (n 6 above) 72-75; Mbazira (n 81 above) 41-50; C Mbazira ‘Confronting the problem of polycentricity in enforcing the socioeconomic rights in the South African Constitution’ (2008) 23 SA Public Law 30; McLean (n 6 above) 114115; Pieterse (n 6 above) 392-395. See further ch 4 below. Brand (n 6 above) 226; Mbazira (n 81 above) 32-37; Pieterse (n 6 above) 391, 394-395 and authorities cited there. For a discussion of these advantages of the judicial process, see Liebenberg (n 6 above) 45-46; Pieterse (n 6 above) 395 and authorities cited there. 26 Chapter 1 through interpretation, to evaluate whether challenged law or conduct falls short of the obligations inherent to the rights, to declare law or conduct that does fall short in this respect unconstitutional and to award appropriate, just and equitable relief to those whose rights have been infringed thereby. In carrying out these tasks, courts have to remain aware of the various separation of powers and related tensions inherent to their role, and should attempt to minimise these as far as is feasible.87 The structural provisions of the Bill of Rights in the Constitution equip them well for this. For instance, the fact that all rights in the Constitution may be limited in terms of a general limitation clause contained in section 36, affords judicial interpreters the luxury of being able to generously and permissively award content to particular rights, without being hindered by the fact that there must inevitably be limits to the extent of their enforcement, since these may properly be deliberated in the limitationstage of proceedings.88 Furthermore, the significant remedial flexibility enjoyed by South African courts under sections 38 and 172 of the Constitution enables them not only to respond appropriately to rightsviolations, but also to avoid potentially unjust or institutionally problematic consequences of declarations of unconstitutionality or of broad and permissive approaches to rights-interpretation, since any unwanted consequences thereof may be constrained by the nature of the remedy awarded in any particular matter.89 South African courts have responded to the challenges posed by the justiciability of socio-economic rights with significant caution. In the certification proceedings preceding the coming into operation of the 1996 Constitution, the Constitutional Court dismissed arguments that socioeconomic rights should not be justiciable because of their budgetary consequences and ‘political’ character. It pointed out that civil and political rights generated a similar range of obligations to socio-economic rights, and that their vindication often held similar budgetary consequences. Accordingly, the Court did not regard the task of adjudicating socio-economic rights as being altogether that different from the ‘ordinary’ business of judicial review.90 87 88 89 90 Pieterse (n 6 above) 402-403, 405. See also Brand (n 6 above) 226-227; Hassim et al (n 13 above) 19; Liebenberg (n 6 above) 45, 63-66. See Liebenberg (n 6 above) 93-97; Pieterse (n 71 above) 478-479; Rautenbach (n 11 above) 32. Liebenberg (n 6 above) 378-380; Pieterse (n 71 above) 479; Pieterse (n 7 above) 337. Various remedies may constitute appropriate, just, equitable and effective relief for unjustifiable infringements of health-related rights, depending on the nature of the right, the nature of the infringement and the circumstances of each case. See, for instance, remedial options discussed by Bilchitz (n 68 above) 18, 25-26; M Swart ‘Left out in the cold? Crafting constitutional remedies for the poorest of the poor’ (2005) 21 South African Journal on Human Rights 215 225-228; W Trengove ‘Judicial remedies for violations of socio-economic rights’ (1999) 1 ESR Review 8. Ex parte Chairperson of the Constitutional Assembly: In re Certification of the Constitution of the Republic of South Africa, 1996 1996 (4) SA 744 (CC) paras 77-78. Rights, health, courts and tranformation 27 However, the Court seemed to be significantly less confident when faced with enforcing a socio-economic right for the first time. In Soobramoney v Minister of Health (KwaZulu-Natal), it was called upon to decide on the constitutionality of a resource rationing policy of a state hospital, when an indigent kidney-failure patient who was denied lifesustaining dialysis treatment because of the policy, claimed that it violated his rights to life, to not be refused emergency medical treatment and to have access to health care services. In dismissing these claims, the Constitutional Court appeared distinctly uneasy with having to adjudicate polycentric health resource allocation issues and adopted a very deferent stance towards the relevant health policy authority, stating that it would ‘be slow to interfere with rational decisions taken in good faith by the political organs and medical authorities whose responsibility it is to deal with such matters’.91 The Court's next socio-economic rights judgment did not involve health, but provided the institutional blueprint for all future socioeconomic rights adjudication. Government of the RSA v Grootboom involved a challenge to a provincial housing plan by a group of homeless persons. It was argued that the right of access to adequate housing encompassed an immediately enforceable minimum core obligation of rudimentary shelter, but the Court declined to interpret the right in this way, since it regarded itself as poorly placed to define the minimum core and since it wanted to avoid an interpretation of the right that would create an immediately enforceable legal demand to be housed.92 Instead, the Court zoomed in on the question of whether the challenged housing plan constituted a ‘reasonable measure’ in terms of section 26(2) of the Constitution. In order to qualify as such, the Court held, measures adopted in pursuit of the progressive realisation of socio-economic rights had to be comprehensive, coherent, balanced and flexible; had to clearly set out the responsibilities of different spheres of government; could not exclude a significant segment of society; had to plan, budget and monitor the fulfilment of immediate needs and the management of crisis situations and had to cater for the urgent needs of the most vulnerable sectors of society.93 The challenged policy was declared unreasonable and hence unconstitutional, mainly because it did not cater for the emergency needs of vulnerable groups. The reasonableness test developed in Grootboom – the institutional logic underlying which has been likened to that inherent to reasonableness 91 92 93 94 Soobramoney v Minister of Health (KwaZulu-Natal) 1998 (1) SA 765 (CC) para 29. The degree of deference adopted by the Court is interrogated in depth in ch 4 below. Government of the RSA v Grootboom 2001 (1) SA 46 (CC) paras 32, 95. Ibid paras 39-44, 46, 66, 68, 82. This summary of the reasonableness test was lifted from Pieterse (n 8 above) 373. See DM Davis ‘Adjudicating the socio-economic rights in the South African Constitution: Towards “deference lite”?’ (2006) 22 South African Journal on Human Rights 301 304, 318; Liebenberg (n 6 above) 133, 173; M Pieterse ‘Procedural relief, constitutional citizenship and socio-eocnomic rights as legitimate expectations’ (2012) 28 South African Journal on Human Rights 359 361; S Wilson & J Dugard 28 Chapter 1 review in administrative law, in that it allows courts to scrutinise the adherence of policy to substantive standards without substituting their own substantive preference regarding the content of the policy for that of the politically chosen policy maker94 ‒ was employed in relation to the right of access to health care services in the landmark decision of Minister of Health v Treatment Action Campaign, where the Constitutional Court found that government policy which restricted the availability of the drug Nevirapine in the public health sector, for purposes of prevention of mother-to-childtransmission of HIV, was unreasonable and unconstitutional. The Court emphatically rejected arguments in favour of a minimum core interpretation of the right of access to health care services,95 and instead focused on the reasonableness of the policy. Its reasons for doing this were almost purely institutional. It stated: [C]ourts are not institutionally equipped to make the wide-ranging factual and political enquiries necessary for determining what the minimum core standards … should be, nor for deciding how public revenues should most effectively be spent. … Courts are ill-suited to adjudicate upon issues where court orders could have multiple social and economic consequences for the community. The Constitution contemplates a rather restrained and focused role for the courts, namely, to require the state to take measures to meet its constitutional obligations and to subject the reasonableness of these measures to evaluation. Such determinations of reasonableness may in fact have budgetary implications, but are not in themselves directed at rearranging budgets. In this way the judicial, legislative and executive functions achieve appropriate constitutional balance.96 The Court concluded that the policy to restrict the availability of Nevirapine was unreasonable, primarily because of its rigidity and inflexibility.97 Having made this finding of unconstitutionality, the Court was somewhat less demure in asserting its power to remedy the constitutional breach. It rejected arguments advanced by the state that the separation of powers prevented it from issuing anything other than declaratory orders in cases of this nature, holding that, since it was constitutionally obliged to consider whether the state had complied with its constitutional obligations in formulating policy and to make just and equitable orders that amount to appropriate relief for a constitutional infringement where this is not the case, any intrusion into executive terrain made in the course of carrying out these obligations was ‘an intrusion mandated by the Constitution itself’.98 It further stated: 94 95 96 97 98 ‘Constitutional jurisprudence: The first and second waves’ in M Langford et al (eds) Socio-economic rights in South Africa: Symbols or substance? (2014) 35 37, 42-43. Minister of Heath v Treatment Action Campaign (No 2) 2002 (5) SA 721 (CC) paras 26-39. Paras 37-38. Paras 80, 95. Para 99. Rights, health, courts and tranformation 29 South African Courts have a wide range of powers at their disposal to ensure that the Constitution is upheld … How they should exercise those powers depends on the circumstances of each particular case. Here due regard must be paid to the roles of the legislature and the executive in a democracy. What must be made clear, however, is that when it is appropriate to do so, courts may ‒ and if need be must ‒ use their wide powers to make orders that affect policy as well as legislation.99 Having boldly asserted its remedial powers, the court then went ahead to exercise them rather sparingly ‒ it ordered government to remove restrictions that prevented the use of Nevirapine in the public sector, beyond research and training sites, where it was medically indicated and where the capacity to administer it existed, to permit and facilitate the use of the drug for this purpose and to progressively extend the capacity to administer it to other sites.100 However, the court did not issue a supervisory order, for which it endured some criticism.101 Despite the court's focus on the reasonableness of measures being widely lamented in the literature, mostly for failing to engage with the content of the rights in question and for allowing a too generous margin of discretion for the state in defining its socio-economic priorities and strategies,102 it has largely persisted with the approach subsequent to the Treatment Action Campaign decision. It has employed the approach in all subsequent cases pertaining to the positive obligations generated by socioeconomic rights, although none of these involved the right to health. The institutional deference inherent to the approach was most visible in Mazibuko v City of Johannesburg, a right to water case where the court was at pains to emphasise that it regarded the legislature and executive as being primarily responsible for elaborating the content of socio-economic rights, and that it its own assessment of the reasonableness of legislative and executive measures was geared primarily at ensuring that the political branches were held appropriately accountable for the manner in which they decided to do so.103 Apart from supplementing the reasonableness approach with an inquiry into the existence of unfair discrimination in Khoza v Minister of 99 100 101 102 Para 113. Para 135. See discussion in ch 3 below. See, for instance, Bilchitz (n 68 above); Bilchitz (n 73 above) 144-145, 155-157,159162; D Brand ‘The proceduralisation of South African socio-economic rights jurisprudence, or “what are socio-economic rights for?”’ in H Botha et al (eds) Rights and democracy in a transformative constitution (2003) 33, 36-37, 46, 49-50, 55; De Vos (n 68 above) 89-90; Liebenberg (2002) (n 69 above) 176, 179, 187; Liebenberg (n 6 above) 173-179; McLean (n 6 above) 187-189; Pieterse (n 71 above) 486-488; Pieterse (n 2 above) 810-813. I consider the appropriateness of various features of the reasonableness approach in ch 2, 3 and 4 below. 103 Mazibuko v City of Johannesburg 2010 (4) SA 1 (CC) paras 66-67, 160-163. For criticism of these aspects of the decision see, for instance, Liebenberg (n 6 above) 480; S Wilson & J Dugard ‘Taking poverty seriously: The South African Constitutional Court and socio-economic rights’ (2011) 22 Stellenbosch Law Review 664 665-670. 30 Chapter 1 Social Development; Mahlaule v Minister of Social Development,104 a social security case where legislation which awarded socio-economic benefits restrictively was also challenged in terms of the right to equality, the Constitutional Court has substantively deviated from the approach only in relation to the negative obligations generated by socio-economic rights. In this regard, it has required an infringement of the obligation to respect the right of access to adequate housing to be justified in terms of the general limitation clause in Jaftha v Schoeman; Van Rooyen v Stoltz,105 and has developed a different remedial paradigm for vindicating the right not to be evicted from one's home without due legal process, in terms of section 26(3) of the Constitution.106 The right to have access to health care services would come before the Constitutional Court only twice after Treatment Action Campaign, both times indirectly. In Minister of Health v New Clicks South Africa, the Court declared regulations which sought to limit pharmaceutical profit margins unconstitutional for a range of reasons, which related mostly to the legality principle and administrative law. However, much of the finding appeared to be informed by the Court's sense that the regulations would harm the right of access to health care services by causing the closure of certain rural and courier pharmacies which served the interests of vulnerable patients.107 Then, in Law Society of South Africa v Minister of Transport, a matter which did not explicitly turn upon the vindication of socioeconomic rights at all, the Court declared a regulation which effectively relegated paraplegic and quadriplegic motor accident victims to be cared for in public hospitals – by limiting the public compensation payable to them – unconstitutional, for infringing the right of access to health care services, since it was shown that the public sector could not provide the care that these patients required.108 For different reasons, neither of these cases turned on the reasonableness of policy. Overall, while there are signs that the Constitutional Court is gradually becoming more comfortable with the notion of enforcing socio-economic rights, including health-related rights, commentators generally remain disappointed by the paucity of substantive standard-setting and the extent of deference to the political branches evident from its jurisprudence in this area. It has been pointed out that, if the Court persists in declining to give 104 2004 (6) SA 505 (CC). 105 2005 (2) SA 140 (CC). For critical discussion, see Liebenberg (2011) (n 69 above) 4041. 106 See, for instance, Port Elizabeth Municipality v Various Occupiers 2005 (1) SA 217 (CC); Occupiers of 51 Olivia Road, Berea Township and 197 Main Street Johannesburg v City of Johannesburg 2008 (3) SA 208 (CC); Residents of Joe Slovo Community, Western Cape v Thubelisha Homes 2010 (3) SA 454 (CC). A discussion of this paradigm is beyond the scope of this book. 107 Minister of Health v New Clicks South Africa (Pty) Ltd 2006 (2) SA 311 (CC) paras 1, 16, 19 (per the entire Court); 32 (per Chaskalson CJ); 437, 514-517 (per Ngcobo J); 650-651 (per Sachs J); 704-706 (per Moseneke J). See further ch 3 and 5 below. 108 Law Society (n 26 above) paras 91-100, 108. Rights, health, courts and tranformation 31 concrete content to socio-economic rights, and linking such content to remedies that translate into adequate relief for aggrieved individual claimants, the rights will remain conceptually empty and be of little use to citizens, who will then not bother to invoke them.109 Moreover, the extent of deference shown by the Court to the political branches of government in defining the content of socio-economic rights and in deciding how the obligations imposed by the rights should be met, has been accused of stifling dialogue between the branches of government and the citizenry, limiting accountability and ultimately diminishing deliberative democracy.110 What appears to be most necessary for the more substantive vindication of socio-economic rights is for South African judges, who have all been schooled in a formalist, deferent and rule-bound liberal legal culture which regards the notion of ‘positive’ rights with suspicion, to change both their mind-set and their methodology in relation to socioeconomic rights. As Sandra Liebenberg has remarked: The fulfillment of the transformative potential of socio-economic rights will depend in part on the willingness of South African judges, practitioners and other participants in socio-economic rights litigation to revisit and refashion many traditional concepts of liberal legalism that inhibit creative, innovative responses to socio-economic rights claims.111 1.5 Conclusion: Aims and objectives of this book As explained at the outset, this book aims to deepen our understanding of the different ways in which the judicial vindication of health-related constitutional rights have impacted on the functioning and transformation of the South African health system, and thereby to assess whether judicial involvement in this discrete policy environment has lived up to the Constitution’s transformative potential. Accordingly, this introductory chapter has provided overviews of the three central pillars of this project ‒ the state of the health system, the content of the constitutional rights involved and the legal approach adopted by the courts that have been tasked with enforcing them. The remaining chapters of the book, then, study different aspects of the interaction between these three. They do not advance a particular, overall argument, or answer a particular, overarching research question. Rather, they each grapple with the impact of rights discourse and of the judicial enforcement of justiciable rights on a particular facet of, or challenge faced 109 See Mubangizi & Twinomugisha (n 3 above) 131; Pieterse (n 71 above) 478; Pieterse (n 2 above) 799; Wilson & Dugard (n 103 above) 10, 23-25; Ely Yamin (n 1 above) 334. 110 See Brand (n 7 above) 619-626; Pieterse (n 7 above) 343-345. 111 Liebenberg (n 6 above) 43. See also Govindjee & Olivier (n 6 above) 169-171; Mubangizi & Twinomugisha (n 3 above) 131; Pieterse (n 6 above) 396-399. 32 Chapter 1 by, the South African health system. They reveal, I think, a mixed message: that the health-related rights in the 1996 Constitution have had a positive, but – unfortunately – limited, impact on the health and lives of their beneficiaries, that they have simultaneously boosted state efforts at transforming the health system and complicated the process, that they have set laudable standards to which the system must aspire whilst punishing the system for failing to achieve them, that they have inserted courts into the political arena and enhanced legislative and executive accountability whilst straining the relationships between these branches of government. Overall, however, my sense is that their impact has been positive, that there is much to learn from the instances where this has not been the case, and that both the health system and its beneficiaries are better off for their presence. While largely critical of the somewhat restrained nature in which South African courts have thus far exercised their constitutional powers in health-related matters, the book also shows that they are starting to find their feet and are, in some respects, beginning to fulfil their role as constitutional watchdogs over compliance with socio-economic rights. Throughout, the book highlights shortcomings in courts’ existing approach towards the adjudication of health-related matters and points towards ways in which it believes courts can enhance their contribution in mandating, guiding and monitoring the necessary transformation of the health system. In chapter 2, the initial focus is on the nature of the measures undertaken by the legislature and executive, since the time of South Africa’s democratic transition, to enhance enjoyment of the right to health. In overviewing the content, achievements and shortcomings of three selected pieces of legislation, the chapter shows, first, how rights provide the impetus for legislative and policy reform to achieve their substantive aims and how they guide the process, secondly, how rights bolster the legitimacy of progressive but controversial legislative and policy initiatives and partly insulate them from legal attack and, thirdly, how the mere constitutional presence of rights is not sufficient to ensure that their substantive aims are fully realised. In light of the latter conclusion, the focus shifts to the Constitutional Court's reasonableness analysis, with the chapter asking whether reasonableness, as employed in health rights matters, has been sufficient to ensure that the legislature and executive deliver fully on their constitutional mandate in this context. Chapter 3 grapples, first, with the different impact that various healthrelated court judgments have had on the lives of the litigants in question as well as on broader society and, secondly, with the seemingly unpredictable bureaucratic impact of these judgments. It first engages in detail with the substantive content of both Constitutional Court and lower court judgments which have decided health-related rights claims and considers the judgments' impact on individual and collective struggles for access to Rights, health, courts and tranformation 33 health care services. Thereafter, it zooms in on three of these judgments, which appear to have had disparate and somewhat contradictory impacts on the regulatory projects to which they have related, in trying to ascertain whether any particular features of the judgments themselves were responsible for this. The conclusions reached are then tied to the social and political forces that surround health system reform in South Africa. Budgets and resource allocation are typically regarded as lying at the borders of the separation of powers and therefore at the outskirts of judicial review. But, as chapter 4 illustrates, the justiciable nature of the healthrelated rights in the South African Constitution has brought resource questions squarely within the arenas of public and legal deliberation. The chapter first illustrates how rights discourse has recast questions of resource allocation and distribution and considers the extent to which the health-related rights in the Bill of Rights may be said to guide resource allocation and distribution processes. Thereafter, the institutional tensions occasioned by this are subjected to closer scrutiny, before the impact of South African human rights jurisprudence on health budgeting and financing is assessed. Having shown that the courts are becoming increasingly comfortable with having to subject assertions of resource scarcity by the political branches to rights-based review, the chapter concludes by considering the current funding discrepancies in the twotiered South African health system and speculating over the extent to which the health rights jurisprudence that has thus far emanated from the courts may impact on the National Health Insurance policy process. Chapter 5 finally tackles the divide between the private and public arms of the South African health system head on, and considers the manner in which rights discourse and litigation has structured and constrained state efforts to overcome it. Unlike previous chapters, which focused on the assertion of health rights against the state by private parties, this chapter is concerned with the ways in which rights can assist the state in asserting its reform mandate against private power in various corners of the private health care industry. After once again sketching the constitutional imperatives for health system transformation, the chapter engages with case-law relating to private sector attempts to stall state efforts at such transformation, in an endeavour to ascertain the extent to which public law principles shape and constrain health system reform, as well as the extent to which such reform must respect existing rights of health care professionals relating to the practice of their profession, as well as the rights of privileged patients to the continued availability and accessibility of existing care. Over and above the limitation of private interests in the pursuit of an equitable health system, the chapter pays attention to the question of the elaboration and enforcement of private obligations under health-related constitutional rights. Finally, chapter 6 engages with the limits of rights and the balancing of competing rights-based objectives, in relation to the manner in which 34 Chapter 1 health-related and other individual rights structure and constrain state efforts to promote, ensure and safeguard the public health. While somewhat out of kilt with the rest of the book, in that the focus is on a different regulatory environment (namely the protection of public and environmental health) the chapter, like chapter 5, is concerned with the manner in which the state’s obligations in terms of the right to health can be fulfilled in the face of competing obligations imposed by the rights of the very citizens whose rights it endeavours to advance. The chapter shows how individual rights, despite sometimes ostensibly conflicting with collective public health objectives, end up enhancing the achievement of these objectives, through insisting that public health measures achieve optimal effectiveness at minimum cost for ill and vulnerable individuals. By way of a case study of the manner in which individual rights have thus far been accommodated in state efforts to contain the spread of extreme drug-resistant tuberculosis, the chapter further provides a critique of the manner in which courts have struck the balance between individual and collective interests within a health system that foregrounds respect for liberty, equality, human dignity and meaningful access to medical care. CHAPTER 2 RIGHTS THROUGH LEGISLATION/LEGISLATION THROUGH RIGHTS: HEALTH LAW AND POLICY 1 IN THE CONSTITUTIONAL ERA. 2.1 Introduction 1 The impact of rights on legislative and policy environments is particularly visible in South Africa, because of the sudden and wholesale manner in which the new constitutional dispensation introduced rights discourse into a legal and policy terrain from which it was previously almost completely absent. Not only was South African public law empty of justiciable rights prior to the adoption of the interim Constitution, but South Africa was also not a party to most of the major international human rights treaties before then. The political transition thus involved the introduction of rights discourse into the South African public law psyche in two ways: First, a splurge of treaty signatures and ratifications in the mid-1990s meant that international human rights norms became binding on the state for the first time.2 Secondly, the inclusion of a justiciable Bill of Rights in the interim and final Constitutions meant that citizens could also enforce rights directly against the state, through the courts. As in most other areas, it was patently clear that the pre-constitutional health system, together with the laws and policies that propped it up, was woefully out of step with the new, rights-based public law culture. It starkly reflected the gross inhumanity, repression and inequality of apartheid South Africa, was severely dysfunctional and clearly could not meet the demands posed by South Africa's ever-increasing burden of disease. 1 2 In places, this chapter draws heavily on and, with kind permission from the editors, partially reproduces sections from M Pieterse ‘Legislative and executive translation of the right to have access to health care services’ (2010) 14 Law, Democracy & Development 1. It, however, extends significantly beyond the scope of that article. Treaties signed and ratified by South Africa in the mid-1990s include the International Covenant on Civil and Political Rights, the UN Convention on the Elimination of All Forms of Racial Discrimination, the UN Convention on the Elimination of All Forms of Discrimination Against Women and the UN Convention on the Rights of the Child. During the same time, government signed, but did not ratify, the International Covenant on Economic, Social and Cultural Rights. As stated in ch 1, ratification of this treaty is now imminent. Ch 1, n 56, and accompanying text. 35 36 Chapter 2 Moreover, since it was conceived, and functioned, without any reference to the right to health, the system simply did not operate on the basis that those who made use of it were legally entitled to treatment, and that such treatment had to be rendered in accordance with certain substantive standards. A radical re-orientation of the system's basic premises and a complete overhaul of its operation were therefore clearly and urgently required. The Constitution makes it clear that the primary responsibility for this re-orientation and overhaul lies with the state. In particular, the responsibility rests on the legislature and the executive who, under section 7(2) of the Constitution, are tasked with respecting, protecting, promoting and fulfilling all of the rights in the Bill of Rights. More specifically, section 27(2) of the Constitution enjoins the state to ‘take reasonable legislative and other measures, within its available resources, to achieve the progressive realisation’ of the right to have access to health care services. But the Bill of Rights does more than just to issue a broad mandate for change. Through its substantive provisions, it provides concrete guidelines for such change, whilst insisting on adherence to these guidelines and tasking the judiciary with monitoring such adherence. As importantly, it bolsters legislative and policy initiatives aimed at such change by clothing them in constitutional legitimacy, hence partially insulating them from political opposition.3 Perhaps predictably then, a sleigh of health-related laws and policies were introduced in South Africa since the adoption of the 1996 Constitution. While it is not possible to say for certain how many of these were directly inspired by the Constitution, almost all of them aim explicitly to give effect to aspects of the right to health and refer to the Constitution and to the rights it contains as underlying and informing their provisions. This chapter first engages with the content and implementation of certain of these laws and policies, in order to illustrate the extent to which the health-related rights in the Bill of Rights have indeed impacted on the legislature- and executive-driven overhaul of the health system. The focus, throughout, is on the extent to which the laws and policies in question have actually enabled people to access health services as a matter of right. Since legislation and policy tend to be more specific than overarching 3 On these functions of the rights in the Bill of Rights in relation to law-driven societal transformation, see P de Vos ‘Substantive equality after Grootboom: The emergence of social and economic context as a guiding value in equality jurisprudence’ (2001) Acta Juridica 52 68-69; S Liebenberg ‘South Africa’s evolving jurisprudence on socioeconomic rights: An effective tool in challenging poverty?’ (2002) 6 Law, Democracy & Development 159 162; M Pieterse ‘What do we mean when we talk about transformative constitutionalism?’ (2005) 20 SA Public Law 155 164; M Pieterse ‘The legitimizing/insulating effect of socio-economic rights’ (2007) 22 Canadian Journal of Law & Society 1 2-3, 9-10. Health law and policy in the Constitutional era 37 constitutional guarantees, tend to specify concrete entitlements and obligations, and tend to be accompanied by implementation structures and frameworks, they have a direct bearing on the extent to which, and the manner in which, people access the objects of their rights in everyday life.4 As such, they translate the abstract rights in the Bill of Rights into everyday access to services, and it is on this basis that their effectiveness should ultimately be judged. Accordingly, section 2.2 below engages primarily with three pieces of legislation. First, it looks at the enactment and enforcement of the Choice on Termination of Pregnancy Act 92 of 1996, which enabled access to previously forbidden reproductive health care services in South Africa. I illustrate how the Act explicitly gave effect to a range of constitutional rights and how this fact has fortified the Act against a number of legal challenges. I also indicate the limits of this law, by highlighting a number of continuing impediments to its implementation. Thereafter, the focus shifts to the National Health Act 61 of 2003, which is arguably the most important piece of health-related legislation passed in the constitutional era, as well as the prime legal portal for access to health care services by the majority of South Africans. I provide an overview of the extent to which the Act has enabled rights-based access to a variety of health services in the public health sector and bemoan the negative effects of crucial ‘gaps in translation’ – resulting mostly from regulatory tardiness – which continue to hinder its effectiveness. Finally, I discuss some of the provisions of the Medical Schemes Act 131 of 1998, which has the effect of regulating access to private sector health care services for members of medical insurance schemes and their dependants. The degree to which people are enabled to access health care services in terms of this Act and its accompanying regulations – which, in practice, apply mostly to middle and upper class South Africans – is contrasted with the extent of access to public care under the National Health Act. In conclusion, the section reiterates that, while individual laws and policies have certainly increased access to health care services in various settings, the structural inequalities occasioned by South Africa's two-tier health system very much remain. It then briefly speculates over what the shortcomings of past legislative and policy reform mean for the introduction of National Health Insurance. Given that the Constitution envisages that the legislature and executive should be held accountable for the manner in which they realise socio-economic rights, by way of the institution of judicial review, section 2.3 engages with the Constitutional Court's approach to evaluating 4 See D Brand ‘Introduction to socio-economic rights in the South African Constitution’ in D Brand & C Heyns (eds) Socio-economic rights in South Africa (2005) 1 14, 16, 23-24; Pieterse (n 1 above) 3-5; F Viljoen ‘National legislation as a source of justiciable socioeconomic rights’ (2005) 6 ESR Review 6 8-9; LA Williams ‘Issues and challenges in addressing poverty and legal rights: A comparative United States / South African analysis’ (2005) 21 South African Journal on Human Rights 436 439, 447. 38 Chapter 2 whether legislative and other measures that are adopted in pursuit of the progressive realisation of socio-economic rights pass constitutional muster. The Court's ‘reasonableness’ approach to the adjudication of socio-economic rights is thus exposited, evaluated and critiqued, and its guiding impact on health law and policy is assessed. 2.2 Health legislation in post-democracy South Africa and its impact on access to care 2.2.1 The Choice on Termination of Pregnancy Act 92 of 1996 (‘CTPA’) Few individual pieces of legislation have as clearly enabled access to a particular kind of health service as has been the case with the CTPA. Prior to its enactment, undergoing an abortion was illegal in South Africa, save for in exceptional circumstances.5 The criminalisation of abortion, which was largely out of step with international human rights law, had a devastating impact on the health and welfare of many, especially poor, women. When faced with unwanted pregnancy, such women either had to illegally access unsafe, ‘private’ (‘backstreet’) abortion services, or carry the pregnancy to term against their will, and at a significant socioeconomic and personal cost.6 The enactment of the Constitution unequivocally signalled that a radical about-turn in the regulation of access to termination of pregnancy services was both inevitable and urgent. In addition to espousing a substantive notion of gender equality, the Constitution explicitly enshrines a right to reproductive freedom, with section 12(2)(a) thereof determining that the right to bodily and psychological integrity includes the right ‘to make decisions concerning reproduction’. Moreover, section 27(1)(a) of the Constitution awards a right ‘to have access to health care services, including reproductive health care’ (my emphasis). Together with government’s ratification, around the same time, of the Convention on the Elimination of All Forms of Discrimination Against Women, this meant that a lack of immediate legislative intervention was likely to lead to constitutional challenge. 5 6 In terms of the Abortion and Sterilization Act 2 of 1975, abortion was only allowed where pregnancy resulted from rape or incest, where the woman suffered from a severe mental illness, where the continued pregnancy endangered the woman's life or seriously threatened her physical or mental health, or where there was a serious risk that the child would be born with a severe and debilitating physical or mental defect. In all other circumstances, performing or undergoing an abortion amounted to a crime. See C Ngwena ‘Accessing abortion services under the Choice on Termination of Pregnancy Act: Realising substantive equality’ (2000) 25 Journal for Juridical Science 19 20-21. Many middle and upper-class women, on the other hand, accessed abortion services outside of the country. Health law and policy in the Constitutional era 39 Unsurprisingly, therefore, the CTPA was one of the first statutes passed subsequent to the adoption of the Constitution. Its preamble explicitly affirms the above constitutional rights and recognises that ‘the decision to have children is fundamental to women’s physical, psychological and social health’ and that ‘the State has the responsibility to provide reproductive health to all, and also to provide safe conditions under which the right of choice can be exercised without fear or harm’. Effectively decriminalising abortion, the Act goes on to determine that women may freely request to have their pregnancies terminated during the first 12 weeks of gestation. From the 13th to the 20th week of pregnancy, termination will be performed only after a medical practitioner has been satisfied that continuing with the pregnancy will result in physical or mental injury or in harm to the social and economic circumstances of the woman; or that there is a substantial risk of physical or mental fetal abnormality, or that the pregnancy resulted from rape or incest. After the 20th week of gestation, abortion will be allowed only where continued pregnancy endangers a woman's life or will result in the risk of severe injury or malformation of the fetus.7 In addition to laying down some minimum standards to which institutions that offer termination of pregnancy services must adhere,8 the Act further determines that only the consent of the pregnant woman herself is required before a termination of pregnancy may be performed.9 Pregnant minors must be advised to consult with parents, guardians, friends or family members before deciding to go ahead with a termination, but termination services may not be refused where they decline to do so.10 Counselling of women intending to undergo terminations of pregnancy is to be promoted, but must be non-mandatory and non-directive.11 All women seeking terminations of pregnancy from a health care establishment must further be informed of their rights in terms of the Act.12 Clearly couched in the language of rights, the Act has been praised for strongly asserting reproductive freedom and the right of access to appropriate reproductive health care services, within a health system that continues to reflect the patriarchal and morally conservative values of 7 8 9 10 11 12 CTPA sec 2. In relation to abortions after the 20th week of gestation, the Act is, ironically, more strict than its predecessor in that s 2(1)(c) does not allow termination of late pregnancies that resulted from rape or incest, or in severely mentally-ill women. On the possible unconstitutionality of this position, see DJ McQuoid-Mason ‘Are the restrictive provisions of sections 2(1)(c) and 5(5)(b) of the Choice on Termination of Pregnancy Act 92 of 1996 unconstitutional?’ (2006) 31 Journal for Juridical Science 121. See CTPA sec 3. These are aimed at ensuring that abortion services are safe and do not cause harm to women who access them and include that facilities must give access to appropriately trained medical staff, appropriate operating theatres, surgical equipment and drugs, emergency facilities, infection control and the like. CTPA subsecs 5(1) and (2). CTPA subsec 5(3). CTPA sec 4. CTPA sec 6. 40 Chapter 2 broader South African society.13 Crucially, the Act has led to a dramatic and sustained increase in the number of legal and safe terminations of pregnancy that are performed annually, whilst simultaneously occasioning an equally dramatic decrease in abortion-related mortality and morbidity.14 The fact that terminations of pregnancy services are further, by legislative decree, available free of charge in the public health sector15 has ensured that they are accessible to women from across all classes. Yet, a number of problems and controversies remain, many of which relate directly to the moral and religious objections of many South Africans to the idea of abortion. Christian organisations, in particular, have consistently opposed the CTPA and have, on more than one occasion, resorted to legal challenges in attempts to have its application restricted. Shortly after the commencement of the Act, its constitutionality was challenged by a Christian organisation, which argued that the entirety of the Act unjustifiably violated fetuses’ constitutional right to life. The Pretoria High Court dismissed the challenge, holding that the wording of the provisions in the Bill of Rights did not indicate that the constitutional drafters intended to depart from the common-law position that fetuses could not be rights-bearers, and that the challenge thus lacked legal basis.16 Part of the reasoning behind this finding was that the court was not prepared to accept, in the absence of a specific provision on fetal rights, that a fetus’ implied right to life could outweigh women’s explicit competing rights to equality, dignity and reproductive autonomy.17 Some years later, the same organisation challenged the constitutionality of the consent provisions contained in section 5 of the Act, in relation to access to termination of pregnancy services by teenage girls. It was argued that the Act's dispensing of the common law requirement of parental consent in relation to surgical operations undergone by their children, in the case of termination of pregnancy, infringed on the right to parental care in section 28(1)(b) of the Constitution. The Pretoria High Court rejected this argument, finding that the Act did not envisage that terminations of pregnancy would be performed on girls who lacked the capacity to consent thereto independently of their parents. In relation to those girls who did have the 13 14 15 16 17 See M de Roubaix ‘Ten years hence ‒ has the South African Choice on Termination of Pregnancy Act, Act 92 of 1996, realised its aims? A moral-critical evaluation’ (2007) 26 Medicine & Law 145 152-153, 156; Ngwena (n 6 above) 21, 23, 31. See C Pickles ‘Lived experiences of the Choice on Termination of Pregnancy Act 92 of 1996: Bridging the gap for women in need’ (2013) 29 South African Journal on Human Rights 515 517, 527, as well as figures discussed by De Roubaix (n 13 above) 173; Ngwena (n 6 above) 31-32. Under subsec 4(3)(c) of the National Health Act 61 of 2003. See Christian Lawyers’ Association of SA v Minister of Health 1998 (4) SA 1113 (T) 1121GJ, 1122G, 1122I, 1123C, 1126E. At 1123E-G. Health law and policy in the Constitutional era 41 adequate capacity to consent independently, the Court felt that to insist on parental involvement under all circumstances would unduly infringe the girls’ constitutional rights to reproductive freedom, access to health care services, dignity and privacy.18 It is clear that the very fact that the provisions of the CTPA resonate with several constitutional rights of pregnant women has, in both the above instances, had a significant influence on the outcome of the cases. The Constitution’s inclusion of rights of reproductive autonomy and access to reproductive care has therefore not only ensured that the CTPA was passed in the first place, but has also lent the Act a significant degree of fortification against constitutional attack, in a social climate where its provisions would otherwise not as easily have been tolerated. But this is not to say that the Act’s implementation has been unmarred by this social and political context. Indeed, it has been shown that, in addition to a lack of awareness of the Act’s provisions and a lack of adequate termination of pregnancy facilities in rural areas, community attitudes towards abortion remain a significant impediment to pregnant women actually accessing these services when they require them, with the result that the problem of unofficial, ‘backstreet’, abortions has not disappeared.19 In particular, many health care professionals refuse to perform terminations of pregnancy, either because of fear of community stigmatisation and hostility, or because they themselves are morally or religiously opposed to the notion of abortion. In rural areas, where human resource shortages hamper access to health care at the best of times and where anti-abortion attitudes are particularly widespread, this often leads to pregnant women effectively being denied access to termination of pregnancy services, even where they actively seek them.20 A significant weakness of the CTPA is that it contains no express provision on conscientious objection by health care professionals, which means that both women's reproductive health care rights and health care practitioners’ freedom of conscience are subjected to the idiosyncrasy of day-to-day practice at health care institutions.21 Section 6 of the CTPA does determine that women must be informed of their rights in terms of the 18 19 20 21 Christian Lawyers' Association v National Minister of Health 2004 (10) BCLR 1086 (T) 1093I-1094C, 1095A-J, 1096C, 1103 F-J, 1104G-1105J, 1106A-D. For discussion, see M Pieterse ‘Children's access to health care services within and outside of the parentchild relationship’ (2010) 73 Tydskrif vir Hedendaagse Romein-Hollandse Reg 230 242-243. See De Roubaix (n 13 above) 155, 174; Ngwena (n 6 above) 33-35; Pickles (n 14 above) 517-520; Pieterse (n 1 above) 15. De Roubaix (n 13 above) 164-165; Ngwena (n 6 above) 36-39; C Ngwena ‘Conscientious objection and legal abortion in South Africa: Delineating the parameters’ (2003) 28 Journal for Juridical Science 1 4; Pickles (n 14 above) 519; M Pieterse ‘Indirect horizontal application of the right to have access to health care services’ (2007) 23 South African Journal on Human Rights 157 173. De Roubaix (n 13 above) 164-165; Ngwena (n 6 above) 39; Ngwena (n 20 above) 4, 16; Pieterse (n 1 above) 15-16. 42 Chapter 2 Act, which could be read to imply that health care practitioners who refuse to perform terminations should refer women who seek such services to somewhere where they could, in fact, receive them. But, at least in rural areas where appropriate health care facilities are few and far between, this is arguably not sufficient to ensure that women are always able to exercise their right of access to reproductive health care services. This goes to show that, much as legislation can advance access to health care services, legislative lacunae can also constitute a hindrance to such access. Clearly, in addition to a pressing need for community education on the importance of access to appropriate reproductive health care,22 there is need for legal certainty on the nature and extent of health care practitioners’ obligations, as well as on the manner in which the balance between the competing rights of health care practitioners and women should be struck in this regard.23 Until such time as the CTPA is amended accordingly, this balance falls to be struck by courts. I have argued elsewhere that, in the same way that the rights served by the CTPA have been held to outweigh rights-based opposition by moral and religious opponents to the Act in the cases discussed above, courts should generally hold that implied constitutional rights of conscientious objection must yield to express rights to reproductive health care. This, I maintain, should be the case except in circumstances where a refusal to render services at a particular institution can be accompanied by an assurance that women may effectively exercise their rights elsewhere, without undue hardship.24 2.2.2 The National Health Act 61 of 2003 (NHA) For more than a decade after the democratic transition, the South African health system languished without framework legislation anchoring it in the constitutional dispensation. The Department of Health published a comprehensive White Paper for the Transformation of the Health System of South Africa in 1997, the aims of which included unifying fragmented health services into a ‘comprehensive and integrated’ national health service, promoting equity, accessibility, availability and appropriateness of health services – which includes increasing the utilisation of health services, ensuring access to comprehensive care, improving access to medicines and increasing community involvement in health care service delivery – focusing on primary health care and addressing human resource 22 23 24 De Roubaix (n 13 above) 174. Ngwena (n 6 above) 39; Ngwena (n 20 above) 11-13; Pickles (n 14 above) 529; Pieterse (n 1 above) 16. Pieterse (n 20 above) 173-174. See also Ngwena (n 6 above) 19, 39; Ngwena (n 20 above) 5, 9, 11-13, 16. Health law and policy in the Constitutional era 43 issues in the health system.25 But apart from isolated pieces of legislation (such as the CTPA and the Medical Schemes Act) aimed at bringing discrete parts of the health system in line with the constitutional vision, the system continued to operate in terms of its pre-constitutional legislative and structural framework. This state of affairs – which was arguably unconstitutional26 ‒ continued until May 2005, when portions of the NHA finally came into operation. Referred to as ‘arguably the most important Act passed by Parliament to give effect to the right of everyone to have access to health care services’,27 the Act aims, in its Preamble, to give effect to the rights contained in sections 27(2); 27(3); 28(1)(c) and 24(a) of the Constitution, so as to unite the various elements of the national health system in a common goal to actively promote and improve the national health system in South Africa; provide for a system of co-operative governance and management of health services, within national guidelines, norms and standards, in which each province, municipality and health district must address questions of health policy and delivery of quality health care services; establish a health system based on decentralised management, principles of equity, efficiency, sound governance, internationally recognised standards of research and a spirit of enquiry and advocacy which encourages participation; promote a spirit of cooperation and shared responsibility among public and private health professionals and providers and other relevant sectors within the context of national, provincial and district health plans. In addition to structurally reconfiguring the health system, into a district-based one emphasising the delivery of primary health care (as initially envisaged by the 1997 White Paper),28 the provisions of the NHA present a significant and comprehensive legislative translation of the constitutional right to have access to health care services into reality for users of the public health care system. In particular, the NHA awards several claimable health-related entitlements to patients who make use of the system. In terms of section 3(1)(e), the Minister of Health must, within available resources, 'ensure the provision of such essential health services, which must at least include primary health services, to the population of the Republic as may be 25 26 27 28 Department of Health White Paper for the Transformation of the Health System of South Africa (1997) sec 1.1.2. See K Pillay ‘Tracking South Africa’s progress on health care rights: Are we any closer to achieving the goal?’ (2003) 7 Law, Democracy & Development 55 65, 78. A Hassim et al (eds) The National Health Act 61 of 2003: A guide (2008) xi. These structural aspects of the NHA are beyond the scope of this chapter, which focuses on the extent of claimable entitlements to medicines and care awarded by the Act. For a thorough exposition and discussion of the structural features of the Act and the implementation tangles that have marred them, see HCJ van Rensburg & MC Engelbrecht ‘Transformation of the South African health system: Post-1994’ in HCJ van Rensburg (ed) Health and health care in South Africa (2ed 2012) 121 135-168. 44 Chapter 2 prescribed after consultation with the National Health Council'. Then, section 4 of the Act determines: (1) The Minister, after consultation with the Minister of Finance, may prescribe conditions subject to which categories of persons are eligible for such free health services at public health establishments as may be prescribed. (2) In prescribing any condition contemplated in subsection (1), the Minister must have regard to – (a) the range of free health services currently available; (b) the categories of persons already receiving free health services; (c) the impact of any such conditions on access to health services; and (d) the needs of vulnerable groups such as women, children, older persons and persons with disabilities. (3) Subject to any condition prescribed by the Minister [of Health], the State and clinics and community health centres funded by the State must provide – (a) pregnant and lactating women and children below the age of six years, who are not members or beneficiaries of medical aid schemes, with free health services; (b) all persons, except members of medical aid schemes and their dependants and persons receiving compensation for compensable occupational diseases, with free primary health care services; and (c) women, subject to the Choice on Termination of Pregnancy Act, 1996 …, free termination of pregnancy services.29 In terms of section 5, no one may be refused emergency medical treatment by public or private health care providers, workers or establishments. The Act further contains several provisions pertaining to the manner in which health care must be rendered, which flesh out patients’ rights to autonomy and bodily integrity.30 Importantly, section 6 requires of patients to be informed, in a language and manner that they can understand, of their health status and available treatment options. Moreover, section 12 mandates the wide dissemination of information on, amongst other things, the kinds of health services available, the extent of their availability, procedures through which available health services may be accessed, procedures for complaining about the manner in which available services have been rendered,31 and the rights and obligations of patients. It thus appears that the NHA awards patients a range of concrete and claimable entitlements to receive particular health care services, and 29 30 31 On the background, content, implications and implementation of this provision, see Van Rensburg & Engelbrecht (n 28 above) 127-128. NHA secs 6-8. The establishment and implementation of transparent, responsive and widely publicised complaints procedures is further mandated by sec 18 of the NHA. Health law and policy in the Constitutional era 45 empowers them to hold health care establishments accountable when they do not deliver accordingly. This is further operationalised by the provisions of the Patients’ Rights Charter, a pre-existing policy document of the Department of Health, which contains a comprehensive general right of access to health care services alongside rights, for instance, to a healthy and safe environment, to participation in health-related decision-making, to choice of health providers, to be referred for a second opinion and to continuity of care. The Charter further entitles and enables patients to complain about inadequate care.32 Its provisions however only apply to patients who had already been admitted to public health care institutions ‒ and do not entitle anyone, for instance, to demand admission – and are not legally enforceable in and of themselves.33 In order to be effective, legislative provisions such as those in the NHA require significant further translation through supporting policy and regulations. Such supporting policy and regulations need to clarify the exact parameters of entitlements to specific services, the obligations of different kinds of health care establishments in delivering such services and the processes through which patients can access their entitlements and insist on compliance with such obligations. Lamentably, in the case of the NHA, such clarification has, more often than not, not been forthcoming. In particular, the Act’s definitions of concepts central to the enjoyment of the entitlements that it awards are often vague, nondescript or non-existent. The definition of ‘health services’, for instance, simply refers back to the relevant constitutional provisions, none of which provide any clarity on the content of the concept. The Ministry of Health has further failed to define concepts such as 'essential health services’, ‘primary health care services’ and ‘emergency medical services and treatment’ by way of regulations, as envisaged by the Act. Nor have any regulations been proclaimed that extend the availability of free health services or that prescribe any conditions for access thereto.34 While it is true that a number of other prior policy documents from the Department of Health do elaborate on some of these concepts,35 the fact that they predate the NHA, operate in a myriad of discrete contexts and are themselves often not legally enforceable means that they do not fully 32 33 34 35 Patients' Rights Charter (2000). For discussion, see Pieterse (n 1 above) 10-11 and authorities cited there. See A Hassim et al (eds) Health & Democracy (2007) 232, 247, 266-267; C Ngwena & R Cook ‘Rights concerning health’ in D Brand & C Heyns (eds) Socio-economic rights in South Africa (2005) 107 145; Pieterse (n 1 above) 11. Ironically, this has had the unintended positive consequence that those services listed in section 4(3) of the Act have, since it’s coming into operation, been available unconditionally. Hassim et al (n 27 above) 23 n 22. For instance, section 2.6.2 of the 1997 White Paper (n 25 above) as well as the Department's subsequent policy document entitled The Primary Health Care Package for South Africa ‒ A Set of Norms and Standards (2000) contain fairly extensive definitions of ‘primary health care’. A number of care-related concepts are also defined in the Patients Rights Charter. 46 Chapter 2 articulate the NHA. It is therefore not always clear to precisely what kinds of services patients can legitimately lay claim in terms of the NHA. This has meant that there is also uncertainty about the scope of the obligations upon health care establishments to deliver particular services,36 especially in the private health care sector. For example, while it is clear from section 5 of the NHA that private health care establishments are bound by the obligation not to refuse emergency medical treatment, lack of clarity as to what precisely qualifies as emergency medical treatment37 and a failure to pass regulations pertaining to the delivery thereof38 has meant that it has largely been left to the private health sector itself to define the scope of its obligations in this regard.39 This has led to significant inconsistencies in compliance with the obligation across the private sector.40 Moreover, the Department of Health's failure to produce several of the regulations envisaged by the Act has meant that many aspects of the health system function according to vague, uncertain or undetermined processes and frameworks, which means that overall implementation of the Act’s substantive provisions has been haphazard.41 This has been exacerbated by the fact that a significant portion of the NHA’s provisions have not yet been brought into operation, several years after the Act initially came into force.42 The result is that ground-level enjoyment of the right of access to health care services has been uneven, with the South African Human Rights Commission reporting, for instance, that less than half of patients qualifying for free health services under section 4 of the NHA actually receive them.43 36 37 38 39 40 41 42 43 Van Rensburg & Engelbrecht (n 28 above) 167-168. On the various definitional issues in relation to emergency care and the various attempts to define it judicially, by regulation and ethically, see Hassim et al (n 33 above) 233; M Pieterse ‘Enforcing the right not be refused emergency medical treatment: Towards appropriate relief ’ (2007) 18 Stellenbosch Law Review 75 83-85; Pieterse (n 1 above) 13-14. As required by NHA sec 90(1)(m). For instance, the Hospital Association of South Africa (HASA) has published Proposed Code of Ethics for Private Hospitals in its 2008 Review (HASA Private Hospital Review 2008: Examination of Factors Impacting on Private Hospitals (2008) 67) which contains a detailed definition of what HASA regards as emergency medical treatment and obliges private hospitals to render such treatment without discrimination to patients who present themselves at emergency facilities, subject to reasonable subsequent compensation (clause 5). The provisions of this code are clearly not legally binding. See Hassim et al (n 27 above) xv; South African Human Rights Commission (SAHRC) Report Public inquiry: Access to health care services (2008) 56. See further ch 5 below. Van Rensburg & Engelbrecht (n 28 above) 167. See for instance the discussion over the haphazard manner in which patients' rights are limited in the interests of the public health, in the absence of required regulations pertaining to infectious disease control, in ch 6 below. See A Gray & C Jack ‘Health legislation and policy’ (2008) 13 SA Health Review 31 33, 35, 45; Hassim et al (n 33 above) 232, 234, 247, 266-267; Hassim et al (n 27 above) xiii, xxi, 22fn21, 23fn22, SAHRC (n 40 above) 6, 43, 55-56. SAHRC (n 40 above) 41. Health law and policy in the Constitutional era 2.2.3 47 The Medical Schemes Act 131 of 1998 One of the more successful instances of legislative and executive translation of the right to have access to health care services in post-1994 South Africa has been the regulation of the medical insurance industry. The Medical Schemes Act and its accompanying regulations have significantly empowered persons in their efforts to become members of medical schemes and have enabled members to insist on certain forms of medical treatment for themselves and their dependants. Not only does the Act contain the most comprehensive definition of the concept ‘health services’ to be found in any South African statute or policy document,44 it entitles all persons who are able to afford membership of medical schemes to be admitted as members regardless of their ‘race, gender, marital status, ethnic or social origin, sexual orientation, pregnancy, disability [or] state of health’45 and prohibits medical schemes from taking into account the members or their dependants’ current state of health, or the frequency with which they require health care, when determining their membership contributions.46 The Act further entitles members to post-retirement continuation of membership of medical schemes and also enables their dependants to remain beneficiaries of schemes after the members’ death.47 Crucially, when read with its accompanying regulations, the Act enables members to insist that their schemes fully cover the costs of diagnosis and treatment of a comprehensive and continuously updated list of conditions, designated in a schedule to the regulations as constituting prescribed minimum benefits of medical scheme membership, that must be made available to all members of medical schemes and to their dependants.48 44 45 46 47 48 Section 1 of the Act defines ‘relevant health service’ as ‘any health care treatment of any person by a person registered in terms of any law, which treatment has as its object – (a) the physical or mental examination of that person; (b) the diagnosis, treatment or prevention of any physical or mental defect, illness or deficiency; (c) the giving of advice in relation to any such defect, illness or deficiency; (d) the giving of advice in relation to, or treatment of, any condition arising out of a pregnancy, including the termination thereof; (e) the prescribing or supplying of any medicine, appliance or apparatus in relation to any such defect, illness or deficiency or a pregnancy, including the termination thereof; or (f) nursing or midwifery, and includes an ambulance service, and the supply of accommodation in an institution established or registered in terms of any law as a hospital, maternity home, nursing home or similar institution where nursing is practised or any other institution where surgical or other medical activities are performed, and such accommodation is necessitated by any physical or mental defect, illness or deficiency or by a pregnancy’. Medical Schemes Act sec 24(2)(e). Sec 29(1)(n). Sec 29(1)(s)-(t). Sec 29(1)(o) read with sec 33(2)(a) and with regs 7-9 as well as Annexure A of the General Regulations Made in Terms of the Medical Schemes Act GN R 1262 of 20 October 1999, as amended. The regulations allow for limited conditions to apply to the enforcement of this entitlement, by for instance permitting medical schemes to insist 48 Chapter 2 The entitlements awarded by the Act and its regulations are operationalised by the Act’s creation of the Council for Medical Schemes,49 which oversees medical schemes’ compliance with the Act and administers a detailed complaints mechanism,50 in terms of which members may, after having exhausted their schemes’ internal dispute resolution processes, complain to the Council over, for instance, schemes’ exclusion or restriction of membership, or their failure to cover prescribed minimum benefits. The Council may suspend the registration of medical schemes who fail to comply with the provisions of the Act or its regulations.51 The Council is further involved in making medical aid consumers aware of their rights and their various forms of recourse in terms of the Act and the regulations. Overall, the Medical Schemes Act and its regulations have been credited for significantly broadening access to (mostly high-quality, private sector) medical care for members of medical schemes.52 But its effectiveness has been significantly hampered by the fact that other features of private health care delivery in South Africa, such as the private hospital and pharmaceutical industries, remain virtually unregulated. This has resulted in significant increases in the costs of private health services in recent years with the effect that, beyond prescribed minimum benefits, most forms of private medical treatment have become unaffordable to all except the most well off segments of society. Escalating treatment costs in the private health sector have further led to a decrease in the number of medical schemes in South Africa, as well as a reduction in benefits offered a significant increase in premiums payable to those schemes that remain.53 This aside, one cannot help but be struck by the irony of the fact that the extent to which claimable entitlements are defined and rendered operational in terms of the Medical Schemes Act, which applies to a small portion of relatively privileged South Africans, by far eclipses the degree to which this is the case under the National Health Act, which applies to the poor majority. It is equally predictable and disconcerting that the respective degrees to which laws that target the two segments of the South African health system are effective in safeguarding the rights of their target population, but mirror the inequalities inherent to the dual system. 48 49 50 51 52 53 on the use of particular treatment providers. For further discussion of the provisions highlighted here, see C van Wyk ‘Access to affordable HIV medicines in South Africa: Patents, parallel importation, generics and medical schemes’ (2006) 39 De Jure 1 21-22. Medical Schemes Act sec 3. Established and structured by the Medical Schemes Act secs 47-50. For an overview of the complaints process, see Hassim et al (n 33 above) 273-274. Hassim et al (n 33 above) 237. Department of Health National Health Insurance in South Africa Policy Paper (2011) (hereinafter ‘NHI Policy Paper’) 11. Health law and policy in the Constitutional era 2.2.4 49 Overview: Transformation through health legislation and policy? The health-related rights in the Constitution have clearly guided the legislature and executive's efforts at reforming the fragmented, unequal and inefficient South African health system. The three Acts discussed above have all, in different ways, contributed to increasing access to health care services by different segments of the population. Notably, unlike the health legislation of the previous era, all three of them depict access to health services as a right and view health care providers (in the public and private health sectors) as being bound by the obligations inherent to this right. Apart from the three Acts discussed above, there have been a number of other legislative interventions in the health arena. These include: the Medical, Dental and Supplementary Health Service Professions Amendment Act 89 of 1997, which addressed some of the human resource issues in the health sector by introducing compulsory community service for medical graduates; the Medicines and Related Substances Control Amendment Act 90 of 1997, which included a number of mechanisms aimed at increasing the affordability of medicines and has subsequently spawned controversial regulations aimed at controlling pharmaceutical retail profit margins; the Promotion of Equality and Prevention of Unfair Discrimination Act 4 of 2000, which contains provisions on ensuring that the right to equality is observed in health care service provision; and the Mental Health Care Act 17 of 2002, which regulates the provision of mental health care services in accordance with the constitutional framework. As with the legislation discussed above, these have all contributed to increased access to health services on the ground. But, while the above discussion attests to the evident capacity of the legislature and policy makers to translate the health-related rights in the Constitution into lived reality through establishing a rights-based framework for access to health care services, it also starkly highlights the limitations of legislation-driven health reform. In particular, it is evident from the discussion of the NHA that legislative and executive tardiness, whether due to lack of capacity, lack of political will, competing priorities or other external pressures, has significantly hampered the effective translation of rights into practice.54 The seeming inability of the democratic branches to promulgate the supporting laws and regulations 54 For discussion of these and other related weaknesses of legislative and executive-driven socio-economic rights reform, see R Dixon ‘Creating dialogue about socio-economic rights: Strong-form versus weak-form judicial review revisited’ (2007) 5 International Journal of Constitutional Law 391 402-404, 414; S Liebenberg ‘Socio-economic rights: Revisiting the reasonableness review/minimum core debate’ in S Woolman & M Bishop (eds) Constitutional conversations (2008) 303 312; M Pieterse ‘On “dialogue”, “translation” and “voice”: A reply to Sandra Liebenberg’ in Woolman & Bishop (this note) 331 334-335; Pieterse (n 1 above) 4-5. 50 Chapter 2 that were required to effectively operationalise the NHA has significantly hindered the practical realisation of the right of access to health care services in South Africa. Moreover, the above discussion attests that implementation of progressive, rights-based health legislation is impacted negatively by the persisting structural inequalities of South African society in general, and of the health system in particular. In its recently issued policy paper on National Health Insurance in South Africa, the Department of Health has admitted that the legislative and policy reforms to date have not succeeded in addressing the disparities, inequalities and inefficiencies associated with South Africa's two-tiered (public versus private) health system, which the Department regards as ‘unsustainable’ and ‘destructive’.55 This fact is the main political driver behind the proposed introduction of a National Health Insurance system, which promises the complete structural overhaul of the health system.56 The legislative process which is to establish the legal framework for this overhaul, kicked off in January of 2012.57 This reconfiguration of the health system is clearly necessary, urgent and mandated by the health-related rights in the Constitution. But the above discussion warns that it will not be brought about by framework legislation alone. The failure of the NHA and associated legislation to bring about the structural change that is required to ensure equitable and universal access to health services in South Africa has been at least partly due to the Department of Health's inability to operationalise some of the more structurally transformative elements of the NHA – such as, for instance, provisions pertaining to certificates of need – and to the failure of both the legislature and the Department to clearly articulate and enforce the health-related obligations of the private health sector. Alongside endemic obstacles to implementation of the structural features of the Act (such as lack of managerial capacity, lack of resource backing, and corruption)58 these more conceptual shortcomings of past legislative and executive attempts at health system transformation will need to be overcome in the legislative and policy process leading into the implementation of National Health Insurance in South Africa. How to ensure that this is the case? By virtue of the fact that the healthrelated rights in the Constitution are justiciable, it has been left to South African courts to hold the democratic branches of government accountable for the manner in which they affect the constitutionally required 55 56 57 58 NHI Policy Paper (n 53 above) 5-6. See also R Amollo ‘In pursuit of health equity in South Africa A critique of the proposed national health insurance: Legislation and policy review’ (2009) 10 ESR Review 14 14-16, as well as ch 1, n 32, and accompanying text. Ch 1, n 33, and accompanying text. See also ch 4 below. NHI Policy Paper (n 53 above) 48. On how these have marred the implementation of the NHA see Van Rensburg & Engelbrecht (n 28 above) 167-168. Health law and policy in the Constitutional era 51 transformation of the health system. At this juncture, then, it is necessary to consider the manner in which courts have thus far held government to account in this regard, as well as the extent to which their enforcement of the health-related rights in the Constitution has guided the transformation of the health system to date. 2.3 Assessing legislative and executive compliance with constitutional health rights: The Constitutional Court's approach Courts, in a constitutional dispensation that incorporates rights-based judicial review of state action in the realm of social and economic policy, are well-placed to identify instances where the legislature or executive have failed to properly translate aspects of socio-economic rights into reality, as well as the reasons for such failures, and to insist on their correction.59 By exercising such oversight, courts hold the democratic branches accountable for the manner in which they give effect to their obligations in terms of entrenched rights. In this way, the rights in question become more than mere directive principles of state policy, in that laws and policies which aim to give effect to them can be judicially tested for constitutional compliance. Through its judgments in matters involving the right of access to health care services, as well as other socio-economic rights in the Constitution, the South African Constitutional Court has clarified how it perceives its role in relation to ensuring legislative and executive accountability in this context. Focusing on the provision in sections 26(2) and 27(2) of the Constitution that the state must 'take reasonable legislative and other measures, within its available resources, to achieve the progressive realisation' of the right to have access to health care services and other socio-economic rights, the Court has indicated that, while it will not dictate to government which steps it should take in aiming to progressively realise socio-economic rights, it will evaluate whether those steps that government have decided to take are constitutionally compliant. Specifically, it will focus on whether challenged socio-economic laws and policies are reasonable in terms of sections 26(2) and 27(2). In Mazibuko v City of Johannesburg, a case concerning the right of access to adequate water, the Court summarised and justified its position in this regard as follows: 59 Dixon (n 54 above) 405; M Pieterse ‘Coming to terms with judicial enforcement of socio-economic rights’ (2004) 20 South African Journal on Human Rights 383 405. See also ch 1, n 87, and accompanying text. 52 Chapter 2 [O]rdinarily it is institutionally inappropriate for a court to determine precisely what the achievement of any particular social and economic right entails and what steps government should take to ensure the progressive realisation of the right. This is a matter, in the first place, for the legislature and executive, the institutions of government best placed to investigate social conditions in the light of available budgets and to determine what targets are achievable in relation to social and economic rights. Indeed, it is desirable as a matter of democratic accountability that they should do so … The Constitution envisages that legislative and other measures will be the primary instrument for the achievement of social and economic rights. Thus it places a positive obligation upon the state to respond to the basic social and economic needs of the people by adopting reasonable legislative and other measures. By adopting such measures, the rights set out in the Constitution acquire content, and that content is subject to the constitutional standard of reasonableness. Thus, the positive obligations imposed upon government by the social and economic rights in our Constitution will be enforced by courts in at least the following ways. If government takes no steps to realise the rights, the courts will require government to take steps. If government’s adopted measures are unreasonable, the courts will similarly require that they be reviewed so as to meet the constitutional standard of reasonableness … Finally, the obligation of progressive realisation imposes a duty upon government continually to review its policies to ensure that achievement of the right is progressively realised.60 As to precisely what the standard of reasonableness demands of the democratic branches, the Court held in Government of the RSA v Grootboom that measures aimed at the progressive realisation of socio-economic rights have to be reasonable ‘both in their conception and their implementation’.61 This means that measures have to ‘clearly allocate responsibilities and tasks to the different spheres of government and ensure that the appropriate financial and human resources are available [for the implementation of the right]’,62 and that legislative measures have to be ‘supported by appropriate, well-directed policies and programmes implemented by the executive’.63 Measures further have to be balanced, flexible and inclusive, and have to cater for short, medium and long-term needs,64 but especially for the needs of those ‘whose needs are most urgent and whose ability to enjoy all rights therefore is most in peril’.65 In Mazibuko, the Court added that reasonableness demands of the government to explain the manner in which a policy was formulated as well as the considerations that impacted on the formulation.66 The reasonableness standard was appropriated in relation to health policy in Minister of Health v Treatment Action Campaign (TAC), where state 60 61 62 63 64 65 66 Mazibuko v City of Johannesburg 2010 (4) SA 1 (CC) paras 60, 66-67. Government of the RSA v Grootboom 2001 (1) SA 46 (CC) para 42. Para 39. Para 42. Para 43. Para 44. Mazibuko (n 60 above) para 161. Health law and policy in the Constitutional era 53 policy on the use of anti-retroviral medication to prevent mother-to-childtransmission of HIV was challenged. In addition to employing all elements of the reasonableness test devised in Grootboom, the Court in TAC held that reasonableness also required of socio-economic policy to be transparent and to be communicated effectively to all concerned with its implementation.67 The challenged policy was found to be unreasonable, primarily because of the rigid and seemingly arbitrary manner in which it restricted the availability of an essential drug to a limited number of designated sites, notwithstanding the need and capacity to broaden access. The state was accordingly ordered to remove restrictions on the availability of the drug in the public health sector.68 The Constitutional Court’s ‘reasonableness approach’ has received some praise for the manner in which it balances the institutional tensions inherent to rights-based judicial review, by leaving it to the legislative and executive branches of government to translate and operationalise the content of constitutional socio-economic rights, while ensuring that legislative or executive translations and their implementation are constitutionally compliant.69 The approach is clearly useful for identifying and correcting flaws in the content of laws and policies aimed at translating health-related socio-economic rights into practice.70 By insisting on the rationality, coherence and flexibility of laws and policy, the reasonableness approach is also indirectly capable of correcting for political blockages in translation processes, as was the case in TAC, where the finding is credited for bringing about a change in policy direction within the Department of Health, by indicating that the state’s political unwillingness to endorse anti-retroviral treatment for HIV was likely to be found unreasonable.71 It is less clear whether the reasonableness approach can correct for failures of health-related laws and policies to achieve structural transformation where this is due to the non-adoption, or to the limited scope, of such laws or policies. As Stuart Wilson and Jackie Dugard have argued, the reasonableness approach suggests that constitutional challenges to the non-delivery of essential goods and services have a better chance of succeeding when they are rooted in existing legislative or policybased entitlements and concern the implementation of existing measures, 67 68 69 70 71 Minister of Health v Treatment Action Campaign (No 2) 2002 (5) SA 721 (CC) para 123. Para 135. The judgment and its effects on health policy are discussed in detail in ch 3 below. See Liebenberg (n 54 above) 319-320; C Steinberg ‘Can reasonableness protect the poor? A review of South Africa’s socio-economic rights jurisprudence’ (2006) 123 South African Law Journal 264 276, 284; CR Sunstein ‘Social and economic rights? Lessons from South Africa’ (2001) 11 Constitutional Forum 123 131. P de Vos ‘Grootboom, the right of access to housing and substantive equality as contextual fairness’ (2001) 17 South African Journal on Human Rights 258 266, 270-272; Liebenberg (n 54 above) 319-320. See L Forman ‘Ensuring reasonable health: Health rights, the judiciary, and South African HIV/AIDS policy’ (2005) 33 Journal of Law, Medicine & Ethics 711; M Pieterse ‘Health, social movements and rights-based litigation in South Africa’ (2008) 35 Journal of Law & Society 364 384, as well as the discussion in ch 3 below at 3.2.3. 54 Chapter 2 rather than when they require detailed steps to be taken to give effect to a right outside the scope of such legislation or policy.72 As indicated in Mazibuko, failure to adopt any laws or policies in pursuit of the progressive realisation of socio-economic rights would be unreasonable. It can also be argued that failure to operationalise legislative provisions by proclaiming relevant regulations – such as that which currently impedes the implementation of much of the NHA – falls short of the requirement that measures must be supported by appropriate executive programmes and policies.73 But, in cases where measures are in place and are appropriately operationalised, it would seem that the reasonableness approach is only capable of measuring them against their own goals, rather than against the substantive requirements posed by the relevant rights. Similarly, where failure to translate particular aspects of constitutional rights into claimable entitlements result from legislative silences or ambiguity ‒ such as in relation to obligations imposed by the right not to be refused emergency medical treatment or to the legal parameters of conscientious objection to terminations of pregnancy – reasonableness appears to be of limited use. The reason for this is the failure of the reasonableness analysis to engage with the content of constitutional rights, as opposed to the content of measures aimed at giving effect to them. Indeed, the Court in Mazibuko explicitly declined to enquire into the content of the right of access to water, holding that such content needs to be elaborated through legislation or policy, and that the Court's role is limited to assessing the reasonableness of these content-giving instruments.74 By limiting itself to evaluating the adherence of socio-economic laws and policies to essentially procedural requirements of good governance, the Court fails to indicate what any of the socio-economic rights in the Constitution mean, not only in terms of the entitlements that they confer upon citizens, but also in terms of what they substantively expect of the legislature and the executive in the first place. This means that there are no substantive guidelines to assist the democratic branches in formulating laws and policies aimed at giving effect to health-related rights in the Constitution, no standards against which legislation and policy's adherence to the substantive demands of the rights can be measured, and no jurisprudence upon which implementers can fall back in cases where there are ambiguities or definitional gaps in legislation or policy – such as those in relation to terms such as ‘health care services’, ‘essential services’ and ‘emergency services’ in the NHA. It also 72 73 74 S Wilson & J Dugard ‘Constitutional Jurisprudence: The First and Second Waves’ in M Langford et al (eds) Socio-economic rights in South Africa: Symbols or substance? (2014) 35 52, 59. Pillay (n 26 above) 73, 78. Mazibuko (n 60 above) paras 66-67; 160-163. For criticism, see authorities cited in ch 1 n 102. Health law and policy in the Constitutional era 55 has the effect of limiting citizens’ health-related entitlements to the parameters of legislation and policy that have been enacted in pursuit of their progressive realisation, however substantively inadequate these may be.75 Commentators have almost universally lambasted this peculiar feature of the Court’s approach, which many view as being out of step with the judiciary’s constitutional obligation to give content to rights through the process of interpretation.76 They have argued, instead, that the Court should adopt or supplement its current approach in a manner that allows for it to engage, on a contingent, flexible and case-by-case basis, with the substantive content of the rights and that, in appropriate cases, holds the democratic branches accountable also in relation to such substantive content. As Sandra Liebenberg states: The courts have a critical role and responsibility in terms of the Constitution to articulate the substantive commitments and values promoted by socioeconomic rights. In so doing, they stimulate deliberative engagement with the constitutional commitments embodied in the socio-economic rights provisions by the other branches of government as well as society as a whole. Only once a focused and sustained effort to develop the values and purposes underpinning the socio-economic rights at stake in a particular case has occurred, can a proper assessment be made regarding whether the measures 75 76 This is illustrated, in a different context, by Nokotyana v Ekurhuleni Metropolitan Municipality 2010 (4) BCLR 312 (CC), where the Constitutional Court declined to decide whether the right of access to adequate housing in sec 26 of the Constitution included entitlements to sanitation or lighting. Instead, it decided the applicants' claim to be provided with sanitation and lighting in terms of ch 12 and 13 of the National Housing Code – which was enacted, inter alia, to regulate the provision of such services – and held that they were not entitled to the services in terms of either, since neither applied to the situation in which the applicants found themselves. Since the applicants did not challenge the provisions of the Code as being inconsistent with the Constitution, this was held to exhaust their claim. For criticism of this invocation of the principle of subsidiarity at the cost of constitutional protection, see D Bilchitz 'Is the Constitutional Court wasting away the rights of the poor? Nokotyana v Ekurhuleni Metropolitan Municipality (2010) 127 South African Law Journal 591 594-595. See, for instance, D Bilchitz ‘Towards a reasonable approach to the minimum core: Laying the foundation for future socio-economic rights jurisprudenc’ (2003) 19 South African Journal on Human Rights 1; D Bilchitz Poverty and fundamental rights: The justification and enforcement of socio-economic rights (2007) 144-145, 155-157, 159-162; D Brand ‘The proceduralisation of South African socio-economic rights jurisprudence, or “what are socio-economic rights for?”’ in H Botha et al (eds) Rights and democracy in a transformative constitution (2003) 33, 36-37, 46, 49-50, 55; P de Vos ‘So much to do, so little done: The right of access to anti-retroviral drugs post-Grootboom’ (2003) 7 Law, Democracy & Development 83 89-90; Liebenberg (n 3 above) 176, 179, 187; S Liebenberg Socio-economic rights: Adjudication under a transformative constitution (2010) 173-179; K McLean Constitutional deference, courts and socio-economic rights in South Africa (2009) 187-189; M Pieterse ‘Eating Socio-economic rights: The usefulness of rights talk in alleviating social hardship revisited’ (2007) 29 Human Rights Quarterly 796 810-813; S Wilson & J Dugard ‘Taking poverty seriously: The South African Constitutional Court and socio-economic rights’ (2011) 22 Stellenbosch Law Review 664 664-673. 56 Chapter 2 adopted by the State are reasonable given its obligations to ‘respect, protect, promote and fulfil’ the relevant rights.77 Finally, it must be noted that, in terms of the Constitution, courts' review function in relation to legislation or policy is only triggered in cases where citizens challenge particular features thereof as being unconstitutional in the first place. This is unlikely to happen where citizens are themselves not clear on the extent of their entitlements under the Constitution. The guiding function of judicial review, limited as it may be under the Court's current approach, is therefore also likely to be limited to one or two features of the legislative and policy scheme aimed at giving effect to constitutional health rights, and is unlikely, in the absence of more substantive pronouncements on the part of the courts, to impact on health system transformation more broadly. 2.4 Conclusion The Constitution's entrenchment of a range of health-related rights clearly required that the South African health system had to be transformed, and clearly envisaged that such transformation would be led by the democratic branches of government. This chapter has shown that such transformation has only partly occurred. While the health system now operates on a rights-based premise, and while a significant number of impressive legislative and other measures have served to enhance access to health care services and to reduce inequalities inherent to the operation of the health system, the system remains inequitable and inefficient. It is further clear from the discussion in this chapter that legislation and policy can make abstract constitutional rights tangible by providing claimable entitlements to the beneficiaries of rights. Legislative provisions discussed here, as well as the policies that operationalise them, have awarded South Africans significant entitlements in relation to health care services rendered in the public and private health sectors. However, the translation of the health rights in the Constitution into such tangible entitlements remains incomplete in a number of respects. This has mainly been attributed to certain failures on the part of the legislature and executive, in particular in relation to the proclamation of policy required to operationalise relevant legislative provisions. As to the impact of the rights in the Constitution on the content of the laws and policies that purport to give effect to them, the chapter has indicated that, apart from mandating the adoption of relevant legislative 77 Liebenberg (n 76 above) 183. See also Brand (n 76 above) 37, 53-54; S Liebenberg ‘Needs, rights and transformation: Adjudicating social rights’ (2006) 17 Stellenbosch Law Review 5 31-33; M Pieterse ‘Resuscitating socio-economic rights: Constitutional entitlements to health care services’ (2006) 22 South African Journal on Human Rights 473 486-488; Wilson & Dugard (n 76 above) 669-673. Health law and policy in the Constitutional era 57 and policy measures in the first place, and from clothing such measures in constitutional legitimacy – hence providing them a measure of fortification against opposition – the extent to which the rights can guide the content of law and policy and hold government accountable in terms of its constitutional obligations depends largely on the manner in which courts exercise their review function in terms of the Bill of Rights. In this regard, the chapter has exposited and critiqued the Constitutional Court's reasonableness approach to socio-economic rights adjudication. In particular, it has joined other commentators in arguing for a more substantive approach to reasonableness that links to a judicially elaborated understanding of the content of the health-related rights in the Constitution. CHAPTER 3 HEALTH RIGHTS LITIGATION, INDIVIDUAL ENTITLEMENTS 1 AND BUREAUCRATIC IMPACT, 3.1 Introduction 1 The political decision to make the socio-economic rights in the Constitution justiciable was not uncontroversial. Concerns were expressed that justiciability would thrust courts into the political arena, where they would be forced to pronounce on the validity of polycentric policy decisions in relation to which, conventional wisdom goes, they are institutionally ill-equipped and lack the required democratic legitimacy. It was further feared that judicial decisions which overturn legislation or executive action pertaining to socio-economic delivery would derail or significantly frustrate delivery efforts and could ultimately thwart legitimate political attempts to transform society.2 Further, some commentators pointed to the not insignificant danger of delegitimising the constitutional project by unrealistically indicating to citizens that they could use the legal process to demand the immediate satisfaction of their every material need, only for their hopes subsequently to be dashed by defeat or, worse still, by empty victory.3 1 2 3 In sections 3.2 and 3.3, this chapter draws heavily on and, with kind permission from the editors, partially reproduces and elaborates on sections from M Pieterse ‘Health, social movements and rights-based litigation in South Africa’ (2008) 35 Journal of Law & Society 364. Sections 3.2, 3.4 and 3.5 are based on an unpublished paper entitled ‘The real and imagined impact of justiciable health rights on the South African health system’ presented at a conference on ‘The Individual v the State’ organised by the Open Society Foundation; Central European University and the European Court for Human Rights, held in Budapest, June 2011. I have elaborated on some of these institutional arguments advanced against the justiciability of socio-economic rights in ch 1 above at 1.4. See further M Pieterse ‘Coming to terms with judicial enforcement of socio-economic rights’ (2004) 20 South African Journal on Human Rights 383 389-396. See, particularly, DM Davis ‘The case against the inclusion of socio-economic demands in a Bill of Rights except as directive principles’ (1992) 8 South African Journal on Human Rights 475 484-485. 59 60 Chapter 3 The idea that the operation and transformation of the health system could be impacted by the adjudication of the specific demands of individual patients was therefore at once exciting and worrying. On the one hand, constitutional rights pertaining to access to health care held the promise of a more egalitarian and patient-focused health system, which catered for the health needs of all, but especially for those of poor and marginalised persons. On the other, it was unsure how the South African health system, seemingly forever teetering on the brink of collapse, would absorb judgments that directly impacted on its operation. The health policy arena is tremendously complex, polycentric and politically loaded. Resources are limited, competing demands are many and stakes are high. Whether rights-based litigation could simultaneously live up to its promise of ensuring that the needs of individual patients are met, and ensure increased access to health services more broadly, by contributing to a more inclusive, equitable and efficient health system, was thus by no means certain. Since 1996, South African courts, led by the Constitutional Court, have decided several high-profile socio-economic rights matters, a fair number of which have involved the right to have access to health care services. Throughout, the courts have displayed acute awareness of the potential polycentric consequences of their judgments and have carefully tailored both their general approach to socio-economic rights adjudication and the orders that they have handed down in such matters, in an attempt to minimise these.4 While some of the Constitutional Court's judgments suggest that it has accordingly adopted a hands-off approach to matters involving socio-economic policy – which, it is feared, may strip the socioeconomic rights in the Constitution of much significance – others indicate that the Court is comfortable with the fact that its judgments will often impact on law and policy, and regards such impact as a necessary consequence of upholding the rights in the Bill of Rights. At least in relation to the right to have access to health care services, the judgments appear to have become increasingly bold in this regard and are generally heralded for advancing the health-related interests of poor and vulnerable South Africans within the context of broader health system reform. But this is not to say that the judgments have necessarily made a substantial difference in the lives of their beneficiaries, or that their impact on health and other social policies has always been predictable, uncontroversial or desirable. Indeed, in certain contexts, the opposite has sometimes been true. As to individual patients, courts have often been lambasted for refusing to interpret the right of access to health care services as engendering immediately claimable individual entitlements – a refusal which, it is feared, could ultimately discourage the poor from relying on 4 DM Davis ‘Adjudicating the socio-economic rights in the South African Constitution: Towards “deference lite”?’ (2006) 22 South African Journal on Human Rights 301 323. Health rights litigation, individual entitlements and bureaucratic impact 61 constitutional rights in order to attempt to satisfy their health needs, as will be discussed below. More broadly, while most judgments upholding health-related constitutional rights have purported to advance the constitutionally compelled transformation of the health system, there have arguably been instances where they have had the unforeseen consequence of frustrating or retarding this, even as they have vindicated the rights in question. With some hindsight, Sandra Liebenberg identified the following contributions that socio-economic rights litigation may make to the overarching pursuit of social justice: First, socio-economic rights litigation may enhance participative democracy by allowing vulnerable and marginalised individuals and groups to draw attention to, and demand justification for the non-satisfaction of, their particular socio-economic needs. Secondly, the litigation may, in appropriate circumstances, lead to affirmative remedies in individual cases, resulting in the tangible alleviation of the particular needs experienced by the individual litigants in a particular matter – and, sometimes, by others similarly situated. Thirdly, even though their immediate impact may be restricted to individualised benefits conferred by a single judgment, consistently pursued litigation around socio-economic rights may over time facilitate ‘non-reformist reforms’ by setting in motion remedial frameworks or ‘trajectories of change’ in terms of which it becomes possible to pursue more structural and wide-reaching social reform. Finally, rights-based litigation may enhance the profile of social issues and hence create a space for collective mobilisation around both particular outcomes and more long-term, structural reforms.5 In this chapter, I first consider the extent to which those judgments of South African courts that have involved health-related constitutional rights have indeed made these contributions, notwithstanding the courts' reluctance to adopt a benefit-focused interpretative approach to the rights. Section 3.2 below provides an overview of the health-related cases that have been decided thus far, their reception by commentators and their impact on both individual patients and the health system more generally. In section 3.3, I assess their outcomes in light of Liebenberg’s framework, with the aim of ascertaining whether they have lived up to the constitutional promise of advancing the interests of individual patients within a transformed health system. Thereafter, the focus shifts to the impact of these judgments on the health system more broadly, with section 3.4 comparing and contrasting the disparate policy and bureaucratic 5 S Liebenberg ‘Rights, needs and transformation: Adjudicating social rights’ (2006) 17 Stellenbosch Law Review 5. This summary of Liebenberg’s argument was lifted from Pieterse (n 1 above) 378. See also M Pieterse ‘Resuscitating socio-economic rights: Constitutional entitlements to health care services’ (2006) 22 South African Journal on Human Rights 473 477; LA Williams ‘Issues and challenges in addressing poverty and legal rights: A comparative United States/South African analysis’ (2005) 21 South African Journal on Human Rights 436 445-446. 62 Chapter 3 impact of certain of the judgments and trying to make sense of the manner in which they have been received by internal and external political environments. Finally, section 3.5 concludes the chapter by considering ways in which future health-rights jurisprudence can at once be individually more empowering and have a more consistently positive impact on the ongoing transformation of the health system. 3.2 The health rights judgments and their aftermaths 3.2.1 Van Biljon v Minister of Correctional Services 66 The very first socio-economic rights case to be decided by a South African court, Van Biljon involved a challenge against the Department of Correctional Services’ failure to provide AZT, at that stage the most widely-used anti-retroviral treatment for HIV/AIDS, to four HIV-positive prisoners to whom the drug had been medically prescribed. At that time, anti-retroviral medication was not yet generally available to patients in the South African public health care system. The prisoners relied on section 35(2)(e) of the Constitution, which determines that detained persons have a right to dignified conditions of detention, which includes the provision of adequate medical treatment at state expense. Much of the argument in the case turned on whether the claimed treatment amounted to ‘adequate’ treatment in the circumstances, a question which the Court answered not only by looking at whether the treatment was medically appropriate and beneficial, but also at whether it was cost-effective.7 The Court found that, given that AZT was at that stage the most effective anti-AIDS medicine on the market, that prisoners are unable to privately procure medical treatment and that they are particularly vulnerable to opportunistic diseases, the treatment had to be regarded as ‘adequate’ and was thus claimable under section 35(2)(e). Not providing the drug to those applicants to whom it had been medically prescribed thus infringed section 35(2)(e), as well as the common law guarantee against unnecessary inroads on prisoners’ personal rights.8 The Court further dismissed an argument that budgetary constraints generally absolved the state from treating HIV-positive prisoners, holding that the state had failed to show that it could not afford to provide the prescribed treatment to the applicants in the current case.9 The 6 7 8 9 1997 (4) SA 441 (C). Paras 49, 52-54. For criticism of the Court’s import of questions of affordability into the notion of adequacy, see M Pieterse ‘The potential of socio-economic rights litigation for the achievement of social justice: Considering the example of access to medical care in South African prisons’ (2006) 50 Journal of African Law 118 125-126 and authorities cited there. Paras 42-43, 52, 60. Para 56, 60. Health rights litigation, individual entitlements and bureaucratic impact 63 Department was thus ordered to provide the first and second applicants with the prescribed treatment.10 However, since the Court was not prepared to make an order guiding a medical decision to prescribe medicine, it dismissed the similar application by the third and fourth applicants, to whom AZT had not been medically prescribed, and expressly limited the effect of the order to the first and second applicants.11 It is not known to what extent the Department of Correctional Services complied with the Court’s order, though it is safe to assume that it did so, especially given the order’s limited reach. The judgment may rightly be lauded for showing that courts are able to make orders in socio-economic rights cases that directly satisfy the material needs that triggered the litigation in the first place.12 But its limited reach, to the extent that similarly situated but unrepresented prisoners were unable to benefit from the order, has necessarily stunted its impact on the policy environment pertaining to health care provision in prisons, where anti-retroviral treatment only became generally available several years later.13 3.2.2 14 Soobramoney v Minister of Health (KwaZulu-Natal) 14 One of the best known early decisions of the Constitutional Court, Soobramoney provides a telling example of the chasm between the promise held forth by the rights in the Bill of Rights and the harsh realities faced by their beneficiaries. A chronically-ill patient in need of life-sustaining renal dialysis brought a challenge against the resource-rationing policy of a state hospital, according to which he did not qualify to receive the treatment. Since demand for dialysis at the Addington Hospital far outstripped the resources that were available for this purpose, hospital managers and medical professionals devised treatment guidelines, according to which only patients who could be cured by dialysis, or who were eligible for a kidney transplant, could receive the treatment. Because he suffered from several other illnesses, including ischaemic heart disease, Mr Soobramoney was accordingly denied dialysis. The Durban High Court dismissed Mr Soobramoney's challenge against the treatment guidelines – which was based on the right to life and the right not to be refused emergency medical treatment – holding that his right to receive dialysis was limited by the unavailability of required 10 11 12 13 14 Para 65. Paras 33-37, 61, 65. Pieterse (n 7 above) 126. For related criticism of the judgment, see C Ngwena & R Cook ‘Rights concerning health’ in D Brand & C Heyns (eds) Socio-economic rights in South Africa (2005) 107 134; Pieterse (n 7 above) 130. 1998 (1) SA 765 (CC). 64 Chapter 3 resources and by the competing rights of other patients.15 This judgment was then unsuccessfully appealed to the Constitutional Court. Lamenting the state of the health care system, which was such that poor people in Mr Soobramoney' s situation ended up effectively being denied treatment because they could not afford to pay for it themselves,16 the Court nevertheless held that the rationing policy was consistent with the right to have access to health care services in section 27(1)(a) of the Constitution, which, in terms of section 27(2), had to be progressively realised subject to the availability of resources.17 This was because the treatment guidelines were rational, and were conceived and implemented in good faith by authorities who the Court considered to be better qualified and placed than itself to determine how the limited resources could optimally be allocated and appropriated.18 The Court therefore dismissed the appeal. Mr Soobramoney died soon after receiving news of the judgment. Various aspects of the Soobramoney judgment have, through the years, been criticised in the academic literature. The Court has come under fire, for instance, for its restrictive interpretation of the rights to life and not to be refused emergency medical treatment,19 its limited engagement with the ambit and scope of the right to have access to health care services,20 the limited scrutiny to which it subjected the state's assertions of resource 15 16 17 18 19 20 The High Court judgment is reported as Soobramoney v Minister of Health (KwaZuluNatal) 1998 (1) SA 430 (D). See specifically 437A-D, 439E-440D. Soobramoney (n 14 above) paras 8, 31 (per Chaskalson P for the majority); 40 (per Madala J concurring separately). The rights to life and not to be refused emergency medical treatment were held not to be relevant to the matter – paras 17-21 (per Chaskalson P). Paras 25, 29-30 (per Chaskalson P for the majority); 58 (per Sachs J concurring separately). See, for instance, D Brand ‘The proceduralisation of South African socio-economic rights jurisprudence, or “what are socio-economic rights for?”’ in H Botha et al (eds) Rights and democracy in a transformative constitution (2003) 33 47; S Liebenberg ‘South Africa's evolving jurisprudence on socio-economic rights: An effective tool in challenging poverty?’ (2002) 6 Law, Democracy & Development 159 165; 167; S Liebenberg Socio-economic rights: Adjudication under a transformative constitution (2010) 137-139, 144; K McLean Constitutional deference, courts and socio-economic rights in South Africa (2009) 124; Ngwena & Cook (n 13 above) 136-137; M Pieterse ‘A different shade of red: Socio-economic dimensions of the right to life in South Africa’ (1999) 15 South African Journal on Human Rights 372 381-383; M Pieterse ‘Enforcing the right not to be refused emergency medical treatment: Towards appropriate relief ’ (2007)18 Stellenbosch Law Review 75 82-85; C Scott & P Alston ‘Adjudicating constitutional priorities in a transnational context: A comment on Soobramoney’s legacy and Grootboom’s promise’ (2000) 16 South African Journal on Human Rights 206 245, 247248. See, for instance, Liebenberg (2010) (n 19 above) 139-142; McLean (n 19 above) 126; F Michelman ‘The Constitution, social rights and reason: A tribute to Etienne Mureinik’ (1998) 14 South African Journal on Human Rights 499 503-504; Scott & Alston (n 19 above) 239; S Wilson & J Dugard ‘Constitutional jurisprudence: The first and second waves’ in M Langford et al (eds) Socio-economic rights in South Africa: Symbols or substance? (2014) 35 39. Health rights litigation, individual entitlements and bureaucratic impact 65 scarcity;21 and the degree of deference shown to the formulators and implementers of the rationing guidelines.22 Much of this criticism appeared to boil down to frustration with the Court's seeming abdication of responsibility for addressing the inequalities in access to care brought about by an unequal distribution of resources in the health system. More emotively, this abdication seemed to be clothed in defeatism, with the Court appearing to imply that the constitutional right to have access to health care services was powerless to address the unfairness inherent to the health system's response to poor patients in need of unaffordable care. This suggested that the optimism sparked by the Van Biljon judgment, that constitutional rights could be used by poor and marginalised members of society to demand that the health system respond to their individual needs, might have been misplaced. 3.2.3 Minister of Health v Treatment Action Campaign (No 2) 2323 One of the best-known examples of the judicial vindication of socioeconomic rights in the world, the Treatment Action Campaign decision is often heralded for showing that socio-economic rights can indeed make a difference in the daily lives of their beneficiaries. But its fame arguably relates just as much to the extremely volatile political climate within which it was decided. As briefly alluded to in chapter 1, for a period from the late-1990s onwards, the conceptualisation and implementation of HIV and AIDS treatment policy in South Africa was virtually paralysed by the wellpublicised AIDS-denialism by then-president Thabo Mbeki, whose embrace of ‘dissident’ beliefs pertaining to the cause and treatment of AIDS, which were accompanied by strong hostility to the use of ARV treatment, were shared by the Health Minister at the time and significantly influenced official HIV policy. ARV treatment for HIV and AIDS was generally unavailable in the public health sector, mainly because the Department of Health regarded it as unaffordable, but also because of ‘concerns’ about its safety and efficacy – concerns which related more to dissident beliefs than to science. These ‘concerns’ even extended to the use of ARVs as post-exposure prophylaxis (‘PEP’) and for prevention of 21 22 23 See, for instance, Liebenberg (2010) (n 19 above) 140; D Moellendorf ‘Reasoning about resources: Soobramoney and the future of socio-economic rights claims’ (1998) 14 South African Journal on Human Rights 327 330-332; C Ngwena ‘The historical development of the South African health-care system: From privilege to egalitarianism’ (2004) 37 De Jure 290 309; Ngwena & Cook (n 13 above) 137; J Sarkin ‘Health’ (1997/8) 8 SA Human Rights Yearbook 97 101-103; Scott & Alston (n 19 above) 239, 241; F van Oosten ‘Financial resources and the patient’s right to health care: Myth and reality’ (1999) 32 De Jure 1 17. This criticism is considered in more detail in ch 4 below. See, for instance, McLean (n 19 above) 126-127; M Pieterse ‘Health care rights, resources and rationing’ (2007) 124 South African Law Journal 514 531-533. This criticism is considered in more detail in ch 4 below. 2002 (5) SA 721 (CC). 66 Chapter 3 mother to child transmission ('PMTCT') of the virus. While there was limited public sector access to both PEP and PMTCT, such access was restricted to health facilities designated as 'research and training' sites, with broader availability supposedly being contingent on the 'concerns' being allayed.24 The Treatment Action Campaign (TAC) initiated litigation around the government's refusal to extend the availability of the drug Nevirapine for use in PMTCT beyond the designated sites. Armed with scientific evidence on the safety, efficacy and appropriateness of the drug and with the knowledge that lack of political will was the only significant hurdle to its broader availability – given that Nevirapine was at the time being made available to the state at no cost and that there was general capacity to administer it at hospitals which offered HIV-testing and counselling services – the TAC argued that the policy restricting the availability of the drug was unreasonable,25 and that the state was accordingly in breach of the obligation to take ‘reasonable legislative and other measures’ to progressively realise the right to have access to health care services, in terms of section 27(1)(a) read with section 27(2) of the Constitution. The TAC’s legal campaign tied in with much visible mobilisation and activism outside of the courtroom and enjoyed widespread public support. It also resonated with health care practitioners at state hospitals – who regarded the restrictions on the use of Nevirapine as being contrary to their ethical obligations towards patients – and, importantly, with certain (hitherto silenced) factions within the Department of Health.26 The matter was also extensively covered in the national and international media, which were virtually universally supportive of the TAC’s demands. 24 25 26 On the prevalence of AIDS-denialism in government at the time, its impact on health policy and its consequences for the South African HIV epidemic, see H Coovadia et al ‘The health and health system of South Africa: Historical roots of current public health challenges’ (2009) 374 The Lancet 817 831; L Forman ‘Ensuring reasonable health: Health rights, the judiciary, and South African HIV/AIDS policy’ (2005) 33 Journal of Law, Medicine & Ethics 711 717; N Geffen Debunking delusions: The inside story of the Treatment Action Campaign (2010) 1-4, 193-196; M Heneke ‘An analysis of HIV-related law in South Africa: Progressive in text, unproductive in practice’ (2009) 18 Transnational Law & Contemporary Problems 751 771-173; M Heywood ‘Preventing mother-to-child HIV transmission in South Africa: Background, strategies and outcomes of the Treatment Action Campaign case against the Minister of Health’ (2003) 19 South African Journal on Human Rights 278 282-285; N Nattrass The moral economy of AIDS in South Africa (2004) 47-55; Pieterse (n 1 above) 367-368. To reiterate, the Constitutional Court's test for determining government compliance with obligations arising from socio-economic rights focuses on the reasonableness of measures adopted in pursuit of the progressive realisation of the rights. In Government of the RSA v Grootboom 2001 (1) SA 46 (CC) paras 39-44, the Court held that reasonableness required of such measures to be balanced, coherent, flexible, inclusive, transparent and capable of achieving the progressive realisation of the relevant rights, both in their conception and in their implementation. Measures further had to pay specific attention to the plight of the most vulnerable and desperate rights-beneficiaries and had to cater for the satisfaction of urgent and pressing needs. See Heywood (n 24 above) 303. Health rights litigation, individual entitlements and bureaucratic impact 67 The TAC was victorious in the Pretoria High Court, which ordered the state to make Nevirapine available for PMTCT where it was medically indicated and where the capacity to administer it existed. It also required the state to develop an ‘effective and comprehensive’ national plan on PMTCT.27 Government appealed the decision to the Constitutional Court, where the appeal was unanimously dismissed. The Court rejected the government’s concerns about the safety and efficacy of Nevirapine as being spurious and lacking in scientific basis,28 found that the policy restricting the availability of the drug was unreasonable because of its rigidity, inflexibility and adverse impact,29 and affirmed the powers of courts in constitutional matters to make orders which impacted on government policy.30 After carefully considering the impact of its proposed order on the public health system, concluding that this would not be significant except for insofar as it required the modification of policy31 and noting that extending the availability of the drug was patently within the resource capacity of the State,32 the Court ordered the government to, ‘without delay’: (a) Remove the restrictions that prevent nevirapine from being made available for the purpose of reducing the risk of mother-to-child transmission of HIV at public hospitals and clinics that are not research and training sites. (b) Permit and facilitate the use of nevirapine for the purpose of reducing the risk of mother-to-child transmission of HIV and to make it available for this purpose at hospitals and clinics when in the judgment of the attending medical practitioner acting in consultation with the medical superintendent of the facility concerned this is medically indicated, which shall if necessary include that the mother concerned has been appropriately tested and counselled. (c) Make provision if necessary for counsellors based at public hospitals and clinics other than the research and training sites to be trained for the counselling necessary for the use of nevirapine to reduce the risk of mother-to-child transmission of HIV. (d) Take reasonable measures to extend the testing and counselling facilities at hospitals and clinics throughout the public health sector to facilitate and expedite the use of nevirapine for the purpose of reducing the risk of mother-to-child transmission of HIV.33 27 28 29 30 31 32 33 The High Court judgment is reported as Treatment Action Campaign v Minister of Health 2002 (4) BCLR 356 (T). Treatment Action Campaign (n 23 above) paras 58-64. Paras 80-81, 95, 135.2(c). Para 113. See ch 1 above at 1.4. Paras 95, 115, 122. Para 71. Para 135.3. 68 Chapter 3 Notwithstanding the far-reaching terms of this order, however, the Court was at pains to point out that it did not create a right to receive Nevirapine on demand.34 This somewhat curious finding linked to the Court’s rejection, earlier in the judgment, of a ‘minimum core’ approach to the interpretation of the right to have access to health care services – which would have implied an individual entitlement to receive such ‘minimum core’ health services – and its opting instead for an inquiry into the reasonableness of the challenged policy.35 A great number of commentators have loudly lamented the Court's stance in this regard, arguing that the rejection of the notion of enforceable entitlement inherent to a minimum core approach betrayed the promise of the constitutional right of access to health care services and bemoaning the conceptual emptiness and lack of accountability inherent to the Court's reasonableness approach.36 Besides these criticisms of the Constitutional Court’s approach to the interpretation of the right to have access to health care services, the Treatment Action Campaign decision would have a significant impact on the policy environment pertaining to access to anti-retroviral medication in the public health care sector. As it became clear during the course of the litigation that the outcome of the matter was all but inevitable, there were significant shifts in government policy. At least two provincial health departments extended the availability of Nevirapine in hospitals under their jurisdiction, in contravention of directives from the Minister of Health, leading the Court to conclude that ‘the state's policy has evolved and is no longer as rigid as it was when the proceedings commenced’.37 The Minister, meanwhile, remained vociferous in her opposition to broadening access to Nevirapine, going as far as to declare on national television that she would not comply with a court order to do so. Amidst the public outcry that followed, however, this statement was soon retracted.38 Indeed, by the time the order was handed down, the state 34 35 36 37 38 Para 125. Paras 31-35, 39. See, for instance, D Bilchitz ‘Towards a reasonable approach to the minimum core: Laying the foundation for future socio-economic rights jurisprudence’ (2003) 19 South African Journal on Human Rights 1; D Bilchitz Poverty and fundamental rights: The justification and enforcement of socio-economic rights (2007) 144-145, 155-157, 159-162; Brand (n 19 above) 36-37, 46, 49-50, 55; P de Vos ‘So much to do, so little done: The right of access to anti-retroviral drugs post-Grootboom’ (2003) 7 Law, Democracy & Development 83 89, 90; Liebenberg (2001) (n 19 above) 176, 179, 187; Liebenberg (2010) (n 19 above) 173-179; C Mbazira Litigating socio-economic rights in South Africa: A choice between corrective and distributive justice (2009) 64-72; McLean (n 19 above) 187189; Pieterse (n 5 above) 486-488; M Pieterse ‘Eating socio-economic rights: The usefulness of rights talk in alleviating social hardship revisited’ (2007) 29 Human Rights Quarterly 796 810-813. Treatment Action Campaign (n 23 above) para 118. For discussion of the provinces’ reaction during the course of the litigation, see Davis (n 4 above) 308; Heywood (n 24 above) 295, 303-304; A Kapczynski & JM Berger ‘The story of the TAC case: The potential and limits of socio-economic rights litigation in South Africa’ in DR Hurwitz et al (eds) Human rights advocacy stories (2009) 43 63. See Heywood (n 24 above) 308-309. Health rights litigation, individual entitlements and bureaucratic impact 69 appeared to be taking it in its stride, claiming that the order affirmed its own approach to extending the availability of the drug and that compliance therewith would not be problematic.39 But this was not entirely the case. While it was true that the order appeared to enable and strengthen compliance efforts in those provinces which had the prior political will as well as the capacity to broaden access to Nevirapine,40 this was not the case in provinces where either the capacity or the political will was absent. At least two provinces failed to comply with the order, while national government was also initially slow in fulfilling its responsibilities in terms thereof. The TAC had to file a complaint with the South African Human Rights Commission, as well as launch contempt of court proceedings, in order to spur greater compliance by these respondents.41 In this context, the Constitutional Court has endured much criticism for failing to confirm the supervisory order handed down by the High Court, in terms of which compliance with the mandatory aspects of the order could be monitored by the Court itself. While explicitly confirming that to exercise supervisory jurisdiction would fall within the remedial powers of courts to order appropriate relief for infringements of socioeconomic rights, the Constitutional Court felt that issuing such an order was unnecessary in the current circumstances, as it had ‘no reason to believe’ that government would not respect and execute the mandatory order.42 In the light of the government’s highly publicised objections to ARV-treatment and its public conduct during the course of the litigation, commentators felt that this was unduly deferent and even irresponsible of the Court, as was borne out by the state's subsequent tardiness in compliance.43 While the TAC had the capacity to insist on compliance with some of the immediate aspects of the order, it has been unable to consistently insist on compliance with its more programmatic aspects. This, it has been argued, has at least partly stunted the overall impact of the decision.44 39 40 41 42 43 44 Heywood (n 24 above) 278; Kapczynski & Berger (n 37 above) 68. M Heywood ‘Contempt or compliance? The TAC case after the Constitutional Court judgment’ (2003) 4 ESR Review 7 9; Kapczynski & Berger (n 37 above) 71. See Heywood (n 24 above) 314-315; Heywood (n 40 above) 9-10; Kapczynski & Berger (n 37 above) 70-71; M Swart ‘Left out in the cold? Crafting constitutional remedies for the poorest of the poor’ (2005) 21 South African Journal on Human Rights 215 223-224. Treatment Action Campaign (n 23 above) para 129. See Bilchitz (2003) (n 36 above) 23-24, 26; Bilchitz (2007) (n 36 above) 162-166; Heywood (n 24 above) 312; Heywood (n 40 above) 11; Kapczynski & Berger (n 37 above) 67; K Roach & G Budlender ‘Mandatory relief and supervisory jurisdiction: When is it appropriate, just and equitable?’ (2005) 112 South African Law Journal 325 333-334; Swart (n 41 above) 228. See J Berger ‘Litigating for social justice in post-apartheid South Africa: A focus on health and education’ in V Gauri & DM Brinks (eds) Courting social justice: Judicial enforcement of social and economic rights in the developing world (2008) 38 71-73; Kapczynski & Berger (n 37 above) 73-74. 70 Chapter 3 Yet there is no denial that this impact has been significant. While it has certainly not solved all the problems pertaining to public-sector access to PMTCT services,45 the judgment led to a definite increase in access to Nevirapine by pregnant, HIV-positive women.46 Perhaps more significantly, it broke a political deadlock which had long restricted access to ARV treatment for AIDS in the public health sector.47 The Court's unequivocal rejection of the state's arguments against extending the availability of Nevirapine dealt a major blow to AIDS-dissidence within government and has been credited with sparking a policy shift within the Department of Health, towards an altogether more rational and sciencebased approach to HIV.48 Indeed, government itself has admitted that the judgment has informed its thinking in relation to its obligations pertaining to the treatment of HIV and AIDS.49 Related to this, the legal victory lent significant momentum to the TAC’s broader campaign for universal public sector access to ARV treatment. In addition to serving as a rallying point for advocacy and mobilisation around this issue, the judgment provided a legal and conceptual framework around which the campaign for universal access could be structured, as well as substantive standards against which policy responses to demands for treatment could be measured.50 This bore fruit ‒ the state announced a National Treatment Plan for HIV/AIDS, which included universal access to ARV treatment, approximately one year after the judgment. 3.2.4 Minister of Health v New Clicks South Africa (Pty) Ltd 5151 An excellent example of the manner in which constitutional rights provide an entry point for arguments about the rights of the poor into legal disputes which, despite impacting significantly on their interests, do not directly 45 46 47 48 49 50 51 It remains the case that only a fraction of women who require PMTCT services do, in fact, access them. Kapczynski & Berger (n 37 above) 47, 71. See further S Woolman et al ‘Why state policies that undermine HIV lay counsellors constitute retrogressive measures that violate the right of access to health care for pregnant women and infants’ (2009) 25 South African Journal on Human Rights 102 104-106. Forman (n 24 above) 719; Heywood (n 24 above) 279; JA Singh et al ‘Do human rights matter to health?’ (2007) 370 The Lancet 521 524. Forman (n 24 above) 719. Forman (n 24 above) 719. See also Kapczynski & Berger (n 37 above) 70; Pieterse (n 1 above) 384. M Heywood ‘Shaping, making and breaking the law in the campaign for a national AIDS treatment plan’ in P Jones & K Stokke (eds) Democratizing development: The politics of socio-economic rights in South Africa (2005) 181 206; Kapczynski & Berger (n 37 above) 76. Berger (n 44 above) 83; Forman (n 24 above) 719; Geffen (n 24 above) 61-69; Heywood (n 49 above) 184; Kapczynski & Berger (n 37 above) 74-76; Ngwena (n 21 above) 305306; Pieterse (n 1 above) 384. 2006 (2) SA 311 (CC). Health rights litigation, individual entitlements and bureaucratic impact 71 involve them,52 the New Clicks litigation grew out of opposition in the private health care sector to state attempts to rein in its virtually unregulated activities. A brief background to this opposition follows. Shortly after the coming into operation of the 1996 Constitution, the state signalled its intentions to make medicines more affordable by means of regulation, by passing the Medicines and Related Substances Control Amendment Act 90 of 1997. The Act awarded significant scope to the Minister of Health to regulate various aspects of the manufacturing, wholesale and retail of pharmaceutical products, in order to make medicines more accessible and affordable. At the time, the Act drew opposition from the international pharmaceutical industry, for potentially allowing the limitation of their intellectual property rights under international trade law. Litigation was initiated, but ultimately abandoned in the face of strong rights-based counterarguments advanced by both government and the TAC.53 Years later, the Minister of Health promulgated regulations in terms of one of the provisions of the Amendment Act,54 which prescribed a maximum dispensing fee that pharmacies could add to the manufacturing exit price of prescribed medicines, hence capping their retail profits. Predictably, the local pharmaceutical retail sector was up in arms and, led by the ‘New Clicks’ group of retail pharmacies, mounted a slew of administrative-law and constitutional challenges against the regulations. These were dismissed by the Cape High Court55 but then upheld by the Supreme Court of Appeal,56 before finally being appealed to the Constitutional Court. At this point, the TAC entered the matter as amicus curiae. While it expressed support for the capping of pharmaceutical profit margins in the interest of making medicines more affordable, the TAC placed evidence before the Court, which showed that the manner in which the regulations arrived at the prescribed dispensing fee would likely have the unintended consequence of driving rural and courier pharmacies, which served a particularly vulnerable group of patients who had limited access to other pharmacies, out of business. In advancing this argument, the TAC has 52 53 54 55 56 M Heywood ‘Debunking conglomo-talk: A case study of the amicus curiae as an instrument for advocacy, investigation and mobilisation’ (2001) 5 Law, Democracy & Development 133 147; Pieterse (n 1 above) 379. On the issues raised and the outcome of this litigation (in the matter of Pharmaceutical Manufacturers Association v President of the RSA TPD 4183/98), see Heywood (n 52 above) 133-162; Pieterse (n 1 above) 372 and authorities there cited. Regulations Relating to a Transparent Pricing System for Medicines and Scheduled Substances GN R553 GG 26304 (30 April 2004), promulgated pursuant to sec 22G of the Medicines and Related Substances Control Amendment Act. Judgment reported as New Clicks South Africa v Tshabalala-Msimang; Pharmaceutical Society of South Africa v Tshabalala-Msimang 2005 (2) SA 530 (C). Judgment reported as Pharmaceutical Society of South Africa v Tshabalala-Msimang; New Clicks South Africa v Tshabalala-Msimang 2005 (3) SA 238 (SCA). 72 Chapter 3 rightly been credited for turning an essentially administrative-law matter focused on the commercial interests of pharmacies into one about access to medicines by vulnerable patients.57 The TAC’s arguments held sway in the Constitutional Court. In a voluminous and complex judgment containing several differing opinions, the majority of the Court found that, while price-control measures in the pharmaceutical sector were both constitutionally legitimate and necessary, and while the bulk of the regulations accordingly passed constitutional muster, the dispensing fee prescribed by the regulations was unreasonable, inappropriate and, accordingly, unconstitutional.58 For most of the Court, this was mainly because the rigid and inflexible manner in which the dispensing fee was determined failed to take account of the specific circumstances of rural and courier pharmacies and of the patients that they served. The result was that, much as the regulations aimed to make medicines more affordable, they threatened to compromise access to health care services by rendering medicines unavailable to patients served by rural and courier pharmacies.59 The specific regulations containing the dispensing fee were accordingly declared unconstitutional and invalid, and were remitted to the relevant pricing committee for reconsideration in the light of the judgment.60 A number of other regulations also required limited amendments in order to be constitutional, and the Minister was further ordered to republish the regulations after such amendments had been affected.61 These findings of unconstitutionality aside, however, the Court was at pains to point out that the regulations were aimed at fulfilling the state’s constitutional obligation to progressively realise the right of access to health care services and that, as such, they were generally constitutionally permissible.62 As I have argued elsewhere, the judgment thus implied that, as long as the state could modify the regulations so as to cure them of the constitutional defects pointed out by the Court, such modified regulations would withstand constitutional scrutiny.63 Accordingly, the general feeling subsequent to the judgment was that, while the pharmacies had won the battle around price setting, it was the state which had won the war. 57 58 59 60 61 62 63 See Pieterse (n 1 above) 379. New Clicks (n 51 above) paras: 7 (per the Court); 404 (per Chaskalson CJ); 527 (per Ngcobo J); 654-655, 666 (per Sachs J); 676 (per Moseneke J). A small number of further regulations were set aside for various reasons, including that they were overly vague, fell short of the standards set by the Promotion of Administrative Justice Act 3 of 2000 and were unreasonable. New Clicks (n 51 above) paras: 19 (per the Court); 404 (per Chaskalson CJ); 526-527; 557-563 (per Ngcobo J); 654-655 (per Sachs J); 714, 772, 781 (per Moseneke J). Para 22(f) (per the Court). Para 22(i) (per the Court). Paras: 1, 16 (per the Court); 32 (per Chaskalson CJ); 437, 514-517 (per Ngcobo J); 650651 (per Sachs J); 704-706 (per Moseneke J). M Pieterse ‘The legitimizing/insulating effect of socio-economic rights’ (2007) 22 Canadian Journal of Law & Society 1 14. Health rights litigation, individual entitlements and bureaucratic impact 73 Yet, the judgment seemingly had the effect of derailing the state's efforts in this regard. It appeared at once to unnerve the Department of Health and to energise private pharmacies in their opposition against any form of regulation of their activities. It took more than a year for the Department to announce a revised dispensing fee. Immediately upon this announcement, a group of pharmacist associations instituted legal proceedings, arguing once again that the fee was inappropriate and unreasonable. Seemingly fearing repetition of the New Clicks saga, the Department undertook not to implement the fee, pending further negotiation with the industry.64 A (once again) revised fee was finally announced in 2010, some 6 years after the initial publication of the Regulations. Its introduction has led to a visible drop in the retail price for most medicines.65 3.2.5 N v Government of the Republic of South Africa 6666 Given the limited reach of the order in Van Biljon, it did not make a perceivable impact on policies pertaining to access to anti-retroviral medication in prisons. Moreover, the kind of mandatory order handed down in Van Biljon appeared to be out of line with the Constitutional Court's subsequent decisions in Soobramoney and Treatment Action Campaign, both of which suggested that the socio-economic rights in the Bill of Rights were directives aimed at ensuring that state policies prioritise equal access to health care services, rather than guarantees to be used by individuals to obtain immediate access to specific forms of treatment for themselves.67 But all of these decisions, together with a number of others, indirectly coloured the broader policy environment pertaining to health care delivery in prisons, in a manner that paved the way for litigation in N v Government of the Republic of South Africa. After Van Biljon, a number of High Court decisions referred to section 35(2)(e) of the Constitution in overturning refusals by prison authorities to grant medical parole to terminally-ill prisoners, partly because the Department of Correctional Services lacked the resources to provide the palliative care that the prisoners required.68 The effect of these decisions, when read with Van Biljon, was that a remedial framework had been constructed, in terms of which prisoners who had been prescribed medical treatment for terminal, or comparably serious, illnesses or conditions, 64 65 66 67 68 See Berger (n 44 above) 60, 79; A Hassim et al (eds) Health & Democracy (2007) 457. DE McIntyre et al ‘Health care financing and expenditure: Post-1994 progress and remaining challenges’ in HCJ van Rensburg (ed) Health and health care in South Africa (2ed 2012) 433 458. For detail on the fee structure, see N Majoe 'Health and welfare' in J Kane-Berman (ed) South Africa Survey 2009-2010 (2010) 467 467-68. 2006 (6) SA 543 (D) (No 1); 2006 (6) SA 568 (D) (No 2); 2006 (6) SA 575 (D) (No 3). Berger (n 44 above) 81-82. See Stanfield v Minister of Correctional Services 2004 (4) SA 43 (C); Du Plooy v Minister of Correctional Services [2004] 3 All SA 613 (T). In the related context of bail applications, see further S v Mpofana 1998 (1) SACR 40 (Tk); S v Vanqa 2000 (2) SACR 37 (Tk). 74 Chapter 3 could claim either to be provided with the prescribed treatment at state expense, or could challenge the legitimacy of their continued detention.69 In the context of HIV/AIDS, this argument was raised before the Constitutional Court in Mnguni v Minister of Correctional Services,70 where a prisoner with full-blown AIDS, who was denied access to anti-retroviral treatment due to resource scarcity, applied for direct access to the Constitutional Court, to challenge the refusal of his request for medical parole. While the application was dismissed on procedural grounds,71 it illustrated that an affirmative remedial framework for section 35(2)(e) of the Constitution was in place. Subsequently, the High Court has, on at least one occasion, overturned a refusal of medical parole to a terminally ill AIDS-patient who was not receiving ARV treatment.72 Meanwhile, in the aftermath of the Treatment Action Campaign decision, a National Treatment Plan for HIV/AIDS, in terms of which prisoners were entitled to receive anti-retroviral treatment, had been proclaimed. However, implementation of the plan by the Department of Correctional Services was lacking. The TAC and Aids Law Project accordingly took legal action, on behalf of a group of prisoners at Durban's Westville Prison who were unable to access treatment at the prison, despite qualifying for it in terms of the Plan. The Durban High Court held that the lack of access to anti-retroviral medication at Westville Prison fell foul of the Department of Correctional Services' obligations under sections 27 and 35(2)(e) of the Constitution, read together with the provisions of the National Treatment Plan. The Court found that the Department's implementation of the Plan was unreasonable because it was inflexible, characterised by ‘unjustified and unexplained delay’ and, in places, irrational.73 The Department was accordingly ordered to provide the applicants, as well as all similarly situated prisoners at Westville prison, with immediate access to the required treatment at an accredited public health facility. The Court further issued a structural interdict, in terms of which the Department had to lodge an affidavit with the applicants' attorneys within a set timeframe, in which 69 70 71 72 73 Liebenberg (2010) (n 19 above) 266-267; Pieterse (n 7 above) 123-127. 2005 (12) BCLR 1187 (CC). It held that the applicant could not establish that there were exceptional circumstances that justified the Constitutional Court hearing the matter as court of first and final instance. However, the Court ordered that the Limpopo Law Society had to be alerted to the claim and had to render appropriate legal assistance, which could include litigation in the correct forum, to the applicant, paras 6-7. For discussion of the judgment, see Pieterse (n 7 above) 128; C van Wyk ‘The impact of HIV/AIDS on bail, medical sentencing and medical parole in South Africa’ (2008) 23 SA Public Law 50 61. Mazibuko v Minister of Correctional Services [2007] JOL 18957 (T), discussed by Van Wyk (n 71 above) 61-62. N (No 1) (n 66 above) para 30. Health rights litigation, individual entitlements and bureaucratic impact 75 it had to set out the manner in which it would comply with the order. The Court also retained jurisdiction over the matter.74 Not only did the N decision illustrate the power of the remedial framework structured by those loosely related decisions on access to health care in prisons that came before it,75 it also showed that, notwithstanding the findings in Soobramoney and Treatment Action Campaign, it will sometimes be appropriate for a Court to order the direct provision of specific forms of medical treatment to individual persons.76 However, implementation of the order in N proved problematic. The state obtained leave to appeal the judgment, upon which the applicants applied to the Court for an order forcing the state to implement the original order pending the appeal. This was granted, again including a structural component.77 However, this order was not complied with and the interim execution order was, in turn, appealed. The applicants again approached the Court, which dismissed the state's application for leave to appeal the interim execution order, noted that the state's non-compliance with this order was in contempt of court and signified a ‘grave constitutional crisis’ and ‘serious threat’ to the separation of powers, and issued a further deadline for implementation of the original order.78 This was complied with and the appeal against the main judgment was not pursued further. Subsequently, the Department engaged with the applicants on the broader implementation of the National Treatment Plan in prisons.79 While the state’s initial non-compliance with N is indeed very concerning, it has to be noted that the terms of the structural interdict and the accompanying supervisory jurisdiction enabled the applicants to maintain the momentum of their victory and to follow up on compliance with the order. As such, the N saga illustrates the power of structural relief in socio-economic rights cases.80 3.2.6 Law Society of South Africa v Minister for Transport 8181 The Law Society case is interesting because, even though a large part of the judgment (and indeed, the only part of the claim that succeeded) relates directly to access to health care services within the private and public 74 75 76 77 78 79 80 81 Para 35. For discussion, see Liebenberg (2010) (n 19 above) 263-264; L Muntingh & C Mbazira ‘Prisoners’ right of access to anti-retroviral treatment: Case review’ (2006) 7 ESR Review 14. Pieterse (n 1 above) 385. Berger (n 44 above) 82-83. N (No 2) (n 66 above). N (No 3) (n 66 above) paras 29, 32-33, 45-46. Liebenberg (2010) (n 19 above) 432-433. For further discussion of the implementation saga, see Hassim et al (n 64 above) 298-299; A Hassim & J Berger ‘Case review: Prisoners’ right of access to anti-retroviral treatment’ (2006) 7 ESR Review 18. See Berger (n 44 above) 77-78, 83; Pieterse (n 1 above) 383. 2011 (2) BCLR 150 (CC). 76 Chapter 3 health sectors respectively, the matter arose in a different regulatory context altogether – the reform of the South African third party compensation system for victims of motor vehicle accidents, which has for many years been litigious terrain. Specifically, the case concerns opposition to amendments affected to the Road Accidents Fund Act 56 of 1996 and regulations proclaimed in terms thereof, according to which limits were introduced to the claims available to victims of road accidents. In particular, the amendments excluded victims' common law claims against wrongdoers for losses that were not compensable under the Act and limited the amount of compensation payable for loss of income or support, while the regulations prescribed tariffs for health services to be provided to accident victims, by public health facilities. The Law Society of South Africa, together with the South African Association of Personal Injury Lawyers, QuadPara Association of South Africa (an organisation promoting the interest of quadriplegic and paraplegic persons) and the National Council for Persons with Physical Disabilities mounted an array of constitutional challenges against these provisions. Only one of these, based on the right of access to health care services, succeeded. The access to health care challenge pertained to one of the regulations,82 which limited the financial liability of the Road Accidents Fund in relation to medical treatment for injuries sustained in the course of motor vehicle accidents, to an amount 'determined in accordance with the Uniform Patient Fee Schedule for fees payable to public health establishments by full-paying patients, prescribed under … the National Health Act'. While this tariff would be sufficient to cover health care services received in the public health sector, it would not afford private sector care. This meant that survivors of motor vehicle accidents, who were not themselves able to pay for private medical treatment, would have to be treated for their injuries in the public sector. The Constitutional Court held that this was constitutionally problematic in relation to those persons who become quadriplegic or paraplegic as a result of motor vehicle accidents. This was because the evidence showed that the public health sector was not able to adequately provide the life-long, specialised care and rehabilitation required by quadriplegics and paraplegics. Because of this, quadriplegics and paraplegics would be ‘constantly at risk in a state hospital as a result of the chronic lack of resources, paucity of staff and inexperience in dealing with spinal cord injuries’83 and hence faced a ‘material risk of untimely death due to untreated complications’.84 The Court thus held that the prescribed tariff unjustifiably infringed the right of access to health care services, in 82 83 84 Regulation 5(1) of 21 July 2008, issued under sec 17(4B)(a) of the Act. Law Society (n 81 above) para 94. See also paras 91-98. Para 94. Health rights litigation, individual entitlements and bureaucratic impact 77 that it was unreasonable for failing to cater for the health needs of quadriplegics and paraplegics. It was accordingly declared unconstitutional.85 The Law Society judgment in effect creates an entitlement for quadriplegic and paraplegic victims of motor vehicle accidents to receive care in the private health sector, or at least to receive public health care that is of a quality comparable to that in the private sector. As such, it is arguably the strongest affirmation of an individual, health-related entitlement to come from the socio-economic rights jurisprudence of the Constitutional Court. Over and above the costs associated with complying with the order, it is perhaps still too early to gauge the effects of the judgment on the South African health policy terrain. But, in a highly charged political environment, where the state and the private health sector are currently at loggerheads over plans to address the inequities inherent to the current two-tier health system, by way of introducing National Health Insurance, its impact may well be profound. At the very least, the judgment appears to restrict government's regulatory scope. It indicates that it will likely be unconstitutional for measures aimed at establishing equitable access to health care services to scale back on the extent of existing access to private health care, unless the public health sector is able to provide all required services of comparable quality. This happens to coincide with the main argument currently being advanced by interest groups within the private health sector, against the introduction of National Health Insurance.86 3.2.7 Lee v Minister of Correctional Services 8787 While not itself directly invoking a health-related right against the state, the Lee case foreshadows the potential indirect impact of such rights, through their influence over the manner in which courts apply the common law in accordance with the ‘spirit, purport and objects’ of the Bill of Rights, on the operation of the health system. Mr Lee sued the Department of Correctional Services for a significant amount of damages, after he was infected with tuberculosis (TB) while in prison. It transpired that health protection and infection control measures in the prison where he was being detained were almost non-existent. The SCA and, subsequently, the Constitutional Court, found that this was in contravention of the constitutional and statutory obligations of the state, as derived respectively from the right to receive adequate health services, as part of the right to dignified conditions of detention in section 35(2)(e) of 85 86 87 Paras 100, 108. See S van der Berg et al Financial implications of a National Health Insurance Plan for South Africa: Study commissioned by the Hospital Association of South Africa (2010) 135. 2013 (2) SA 144 (CC). 78 Chapter 3 the Constitution, and from section 12(1) of the Correctional Services Act 111 of 1998 – which obliges the Department to provide prisoners with health services that are adequate to enable them to lead healthy lives.88 The prison authorities’ failure to take appropriate measures to protect inmates from TB infection was accordingly held to be wrongful. Both courts also found that this was negligent, and that a claim for damages ought to be recognised to vindicate prisoners’ rights in this regard.89 In relation to the legal requirement of causation, the SCA felt that it could not be proven that Mr Lee would not have contracted TB even if appropriate disease control measures had indeed been in place and that it was therefore not certain that he was, in fact, infected as a result of the Department's wrongful negligent conduct rather than simply through circumstance. However, the majority of the Constitutional Court overturned this finding, as it regarded the ‘probable factual causation’ occasioned by the Department’s negligent omission to have reasonable infection control measures in place as sufficient to found causation.90 The claim thus succeeded on appeal. The Lee case points towards the routine violations of various aspects of the right to health in a prisons context and raises the possibility of state responsibility for other negative health consequences of constitutionally unacceptable prison conditions. For instance, Annelize Nienaber raises the possibility of the state being held liable, in light of the judgment, for HIV transmission in prisons, where such transmission can be related to, for instance, prison overcrowding, failure to provide condoms in prison and failure to protect prisoners from sexual assault.91 But over and above the prison context, the judgment raises, in very real terms, the possibility of state liability for the individual consequences of health system failures. The courts' recognition that such claims for damages are valid in principle and their location of wrongfulness in the non-fulfilment of a constitutional obligation in this context have potentially far-reaching consequences for the Department of Health, not only in relation to health protection, but also in relation to poor health outcomes associated with the standard of care in the public health sector. In this sense, then, the Lee judgment points to a thus far unexplored avenue of individual relief for breaches of the constitutional embodiment of the right to health, which may significantly enhance accountability of the system for the consequences of its failures. 88 89 90 91 Minister of Correctional Services v Lee 2012 (3) SA 617 (SCA) paras 36, 38; Lee (CC) (n 87 above) para 59. Lee (CC) (n 87 above) para 65; Lee (SCA) (n 88 above) paras 42, 44. Lee (CC) (n 87 above) paras 42-71, overturning Lee (SCA) (n 88 above) paras 45-64. A Nienaber ‘Liability for the wrongful transmission of communicable diseases in South African prisons: What about HIV?’ (2013) 28 SA Public Law 163. Health rights litigation, individual entitlements and bureaucratic impact 79 3.3 The impact of the health rights judgments on individual and collective struggles for access to health care services 9292 In this subsection, I reflect upon the extent to which reliance on healthrelated constitutional rights have impacted, first, on the lives of the individual beneficiaries of the rights and, secondly, on the activities of the organisations and movements that represent their collective concerns. In doing so, I mimic the structure of Sandra Liebenberg’s assessment of the transformative potential of socio-economic rights, to which I alluded in the introductory section. First, the jurisprudence discussed above appears to bear out Liebenberg’s assertion that socio-economic rights litigation amplifies the voice of rights-beneficiaries in struggles over their access to basic amenities and empowers them, as well as the movements that represent them, to engage the state, or other powerful entities, on equal footing. Thereby, justiciable rights enable people to insist that due attention be paid to their needs and to hold the state accountable for the way in which it carries out its obligations to fulfil these needs.93 To the extent that these demands by the poor are muted, sidelined or ignored by mainstream political processes, socio-economic rights litigation thus has the potential to enhance state accountability and participatory democracy.94 As illustrated by the New-Clicks case, justiciable socio-economic rights also allow for the amplification of the voice of the poor in litigation that does not directly involve them. On the face of it, New Clicks was a technical dispute between Government and the pharmaceutical industry. However, its outcome clearly had manifest implications for the ability of poor South Africans to access affordable medicines. Because of the presence of a justiciable right to have access to health services in the Constitution, the TAC could interject in the matter and mandate consideration of the poor’s interests in accessing affordable medicines, hence contributing to a judgment that safeguarded those interests.95 Another example of this is the 92 93 94 95 This subsection is a substantially revised version of Pieterse (n 1 above) 379-386. It appears, from various statements in Mazibuko v City of Johannesburg 2010 (4) SA 1 (CC), as well as from its recent housing jurisprudence, that the Constitutional Court considers this accountability-enhancing feature of socio-economic rights litigation as being its primary function. See Mazibuko (ibid) at paras 159-165; also B Ray ‘Proceduralisation's triumph and engagement's promise in socio-economic rights litigation’ (2011) 27 South African Journal on Human Rights 107 107-108. Liebenberg (n 5 above) 7-8, 20, 36. See also R Ballard ‘Social movements in postApartheid South Africa: An introduction’ in Jones & Stokke (eds) (n 49 above) 77 88; D Davis ‘Socio-economic rights in South Africa: The record of the Constitutional Court after ten years’ (2004) 5 ESR Review 3 7; Pieterse (n 7 above) 129; Ray (n 93 above) 114. This was also the case in the settled PMA litigation. See n 53 above, also Heywood (n 52 above) 147. 80 Chapter 3 recent CIPLA Medpro (Pty) Ltd v Aventis Pharma, SA, where the TAC interjected in a medicines patent dispute between pharmaceutical manufacturers, to argue against the enforcement of a patent that was soon to expire. While not giving effect to this argument, the SCA acknowledged that the right to have access to health care services requires of courts to have regard to the public interest in accessing affordable medicines, over and above the competing interests of the litigating parties, in matters of this nature.96 Over and above this indirect bolstering of their interests, however, Siri Gloppen has argued that the participatory potential of socio-economic rights depends largely on the willingness and ability of the poor to voice their needs in court, and on the responsiveness of the judiciary to their claims.97 In South Africa, the poor’s willingness and ability to use the legal process themselves in attempting to vindicate their rights is negatively impacted by lack of rights-awareness, lack of access to legal advice, practical barriers to access to justice (such as time, distance and language), distrust of the legal system, scepticism over the chances of succeeding with rights-claims and the high costs of litigation.98 The effect of these structural barriers to justice is exacerbated by procedural features of the legal system that limit access to courts. For instance, there has been significant criticism of the Constitutional Court’s reluctance to grant direct access to litigants in socio-economic rights matters, due to the Court’s preference, for various reasons, for such matters to reach it by way of referral or appeal from the High Courts. Since poor litigants will often be deterred by the prospect of a lengthy and costly process, involving multiple court hearings and appeals, this practice clearly contributes to muting their voice.99 Once litigants manage to access a court, the manner in which it hears and decides their claim may also stifle the participatory potential of socioeconomic rights. Stuart Wilson and Jackie Dugard have for instance convincingly shown that in recent (albeit non-health-related) socioeconomic rights judgments, notably that of Mazibuko v City of Johannesburg, the Constitutional Court has practically ignored evidence of the lived experiences of claimants in deciding their matters, and has chosen instead 96 97 98 99 CIPLA Medpro (Pty) Ltd v Aventis Pharma, SA (2013) 4 SA 579 (SCA) para 46. S Gloppen ‘Social rights litigation as transformation: South African perspectives’ in Jones & Stokke (eds) (n 49 above) 153 158-160. Gloppen (n 97 above) 158. J Dugard ‘Court of first instance? Towards a pro-poor jurisdiction for the South African Constitutional Court’ (2006) 22 South African Journal on Human Rights 261 272281; J Dugard & T Roux ‘The record of the South African Constitutional Court in providing an institutional voice for the poor: 1995-2004’ in R Gargarella et al (eds) Courts and social transformation in new democracies: An institutional voice for the poor? (2006) 107 111-113. This is illustrated by the Mnguni case (n 70 above), where the applicant was denied direct access to the Constitutional Court, and was instead referred to a provincial Law Society and not heard from again. Health rights litigation, individual entitlements and bureaucratic impact 81 to focus on the features of the policies that they are challenging, as well as on the intentions, objectives and hurdles faced by those who devise and implement these policies.100 This calls to mind earlier criticism that the Court’s focus on the reasonableness of measures aimed at giving progressive effect to socio-economic rights removes the focus of the litigation from the needs and experiences of the poor and thereby muffles their voice,101 not least by effectively relegating them back to the very democratic processes whose failure sparked their resort to the legal process in the first place.102 As such, it is conceivable that the substantive features of the Constitutional Court’s health rights jurisprudence will discourage poor people from resorting to litigation in an effort to assert their voice. In this respect, commentators point, first, to the onerous evidentiary burden implied by the Constitutional Court's reasonableness approach, which requires claimants to show the unreasonableness of a great array of budgetary- and policy processes involving complex and specialist information.103 Secondly, the message sent by, for instance, the Court’s dismissal of the Soobramoney claim – where it found that individual claims for access to medical treatment could not be upheld in the face of a legion of competing claims by others – and its insistence in Treatment Action Campaign that its finding did not mean that individuals could demand immediate access to services, is that, even where this evidentiary burden is met, claims for individual relief in socio-economic rights matters are unlikely to succeed. Viewed together, it is tempting to conclude that it will simply seldom be worthwhile for the poor to resort to litigation in an effort to secure access to basic services.104 Flowing from this, the Court's averseness to the notion of individual, directly claimable, relief in socio-economic rights matters obviously also significantly restricts the extent to which reliance on health-related rights in litigation can, in the short term, demonstrably alleviate the particular needs of individual claimants and of others who are similarly situated. As Gloppen has argued, socio-economic rights litigation will only be able to do this if judges are both legally empowered (as South African judges are) and willing (as they are not) to respond directly and affirmatively to social rights claims and if, in addition, they display significant remedial flexibility 100 S Wilson & J Dugard ‘Taking poverty seriously: The South African Constitutional Court and socio-economic rights’ (2011) 22 Stellenbosch Law Review 664 665-670. See also Wilson & Dugard (n 20 above) 57-58. 101 On the sidelining of need in terms of the reasonableness approach see, for instance, Bilchitz (2007) (n 30 above) 160; Brand (n 19 above) 36-37, 49, 55. 102 Wilson & Dugard (n 100 above) 665, 670; Wilson & Dugard (n 20 above) 57-58. 103 See S Liebenberg ‘The value of human dignity in interpreting socio-economic rights’ (2005) 21 South African Journal on Human Rights 1 22-23. 104 See also Dugard & Roux (n 99 above) 113, 118-119; Forman (n 24 above) 715; Gloppen (n 97 above) 169; Heywood (n 24 above) 300; Liebenberg (2001) (n 19 above) 176; Pieterse (n 5 above) 490; Wilson & Dugard (n 20 above) 44. 82 Chapter 3 and creativity. Judicial remedies will further be of little significance if compliance with their terms cannot be ensured.105 But, this notwithstanding, it would be wrong to assert that the judgments that have upheld health-related rights thus far have not tangibly impacted on individual lives. As alluded to above, the Treatment Action Campaign decision may directly be credited for a significant, actual increase in individual access to Nevirapine by pregnant, HIV-positive women across the country. The same can be said, for instance, of the Van Biljon and N judgments, in relation to access to anti-retroviral drugs by individual prisoners. Moreover, by declaring unconstitutional amendments to legislation that would deprive paraplegic and quadriplegic motor accident survivors of private health services to which they had been entitled under the previous iteration of the legislation, the Law Society judgment affirms conventional wisdom that rights are capable of providing strong, individual protection against the scaling back of existing legal entitlements to particular goods or services.106 In addition, Liebenberg’s assertion that the impact of individual socioeconomic rights victories may extend beyond their immediate benefit for successful litigants, to also influence social and political processes which will then, as a result, produce both individual and more systemic socioeconomic gains over time,107 appears to be borne out by the health-rights judgments discussed above. Specifically, Treatment Action Campaign is a sterling example of this. Apart from its resulting affirmative individual benefits, the political impact of the judgment was immense, especially given the context in which the litigation was waged. The judgment’s characterisation of the State’s PMTCT policy as ‘unreasonable’ and its accompanying rejection, on the bases of science and rationality, of the government’s dissidence-infused ‘concerns’ over the safety and efficacy of Nevirapine, had the effect of reconfiguring the policy arena around HIV and AIDS in South Africa, resulting in a policy shift towards treatmentbased solutions. The TAC’s political victory over the government further significantly strengthened the movement in its broader political struggle for universal access to ARV treatment in the public sector, with the result that 105 Gloppen (n 97 above) 161-163. On the need for more robust remedies in socioeconomic rights cases and related institutional issues, see further Liebenberg (n 5 above) 33-34; Roach & Budlender (n 43 above); Swart (n 41 above). 106 On the remedial potential of such 'negative' rights enforcement see, for instance, DM Chirwa ‘The right to health in international law: Its implications for the obligations of state and non-state actors in ensuring access to essential medicine' (2003) 19 South African Journal on Human Rights 541 559, 564; De Vos (n 36 above) 88-89; Liebenberg (2001) (n 19 above) 163, 178; Liebenberg (2010) (n 19 above) 214-218; Pieterse (n 5 above) 494-495. This is however not uncontroversial, especially when it comes to the redistribution of resources – see ch 4 below as well as S Liebenberg 'Grootboom and the seduction of the negative/positive duties dichotomy' (2011) 26 SA Public Law 37. 107 Liebenberg (n 5 above) 10, 30-31. See also Pieterse (2006) (n 19 above) 477. Health rights litigation, individual entitlements and bureaucratic impact 83 it was able to pressure government into accelerating the formulation and implementation of a universal roll-out plan.108 It is also illustrative to note the manner in which, in the prison context, the Treatment Action Campaign judgment interacted with Van Biljon and with a range of seemingly unrelated medical parole decisions, to structure a remedial framework that facilitated and bolstered activism around access to anti-retroviral medication in prisons, culminating in the legal victory in N. Implementation problems aside, this victory had widespread positive effects for HIV-positive, detained persons.109 Even when their full transformative impact is not always immediately apparent, it is therefore clear that legal victories may through time contribute to more wide-reaching social reforms. Judgments vindicating different aspects of socio-economic rights interact and feed off each other through time, hence assisting in more structural and wide-ranging transformation through ‘non-reformist reforms’.110 While the broader transformative impact of socio-economic rights litigation in this respect will clearly be most significant where the litigation ties into sustained, overarching social campaigns, it remains that non-aligned and more restricted rights-victories may assist in the development of affirmative remedial frameworks that may significantly bolster or enable such campaigns. As such, the above discussion also attests to the usefulness of rightsbased litigation as an ‘organizing point’ for continued activism around broader reforms. The TAC’s significant impact on the health policy environment, which shapes the poor’s access to medicine, has been attributed not only to the popularity, urgency and profile of its cause, but also to its ability to combine popular mobilisation with legal strategies.111 The movement has been able to raise the profile of the poor’s plight in relation to access to anti-AIDS medications, both through mobilising around existing litigation in order to gain widespread credibility and support for its arguments, and through using its legal victories as a basis for sustained activism and further mobilisation around broader reforms. However, the fact that the success and broader transformative impact of the public interest litigation initiated by the TAC have significantly overshadowed that of cases brought by individual litigants in their own interest, arguably illustrates that the transformative potential of socioeconomic rights litigation will be curtailed where such litigation does not relate to an issue of extreme public importance and profile, and where it 108 109 110 111 N 48-50 above and accompanying text. See Pieterse (n 7 above) 130-131; Pieterse (n 1 above) 385. Liebenberg (n 5 above) 10. Argued by Heywood (n 49 above) 207-208. 84 Chapter 3 fails to tie into a consistently pursued and multi-faceted campaign by a well-resourced and adequately mobilised social movement.112 This said, it may nevertheless be argued that, regardless of their profile and success, individual health-rights cases have raised the public profile of the poor’s interests in obtaining access to health care. By casting the interests of the poor in terms of rights-based entitlement rather than ‘welfare’ or ‘neediness’, the judgments have provided an important counterweight to increasingly neo-liberal societal discourses over poverty. Even the loss of the Soobramoney case had a positive effect in this regard, by provoking public reflection over societal priorities in the context of unnecessary illness, suffering and death as a result of poverty.113 Rightsbased litigation may therefore increase public support for social movements concerned with poverty alleviation and enrich public discourse around the manner in which society responds to the plight of the poor. 3.4 The impact of rights-vindication on health system reform Over and above their impact on individual litigants, other rightsbeneficiaries and social movements, it is clear from the above discussion that rights-based judgments also significantly influence the regulatory environments into which they are released. However, this impact appears, at best, to be unpredictable and not necessarily related to the outcome of the constitutional challenges in question.114 In this subsection, I compare and contrast the policy impact of the Treatment Action Campaign, New Clicks and Law Society judgments. All three of these were in favour of health system transformation and sought to advance meaningful access to health care services within a transformed system, either by countering countertransformative or regressive tendencies within the Department of Health, or by ensuring that reform efforts pay sufficient attention to the needs of the ill and vulnerable. Moreover, as discussed above, all three judgments have generally implied positive consequences for access to health services by specific groups of vulnerable patients. Yet, it would seem that their impact on the transformation of the health system has been mixed. Why has this been the case? 112 Davis (n 4 above) 326. 113 See newspaper articles cited in Pieterse (n 1 above) 386. 114 For similar observations regarding the policy impact of rights-based judgments in other jurisdictions see, for instance, CP Manfredi & A Maioni ‘“The last line of defence for citizens”: Litigating private health insurance in Chaoulli v Quebec’ (2006) 44 Osgoode Hall Law Journal 249 251; M Sunkin ‘Conceptual issues in researching the impact of judicial review on government bureaucracies’ in M Hertogh & S Halliday (eds) Judicial review and bureaucratic impact: International and interdisciplinary perspectives (2004) 43 52. Health rights litigation, individual entitlements and bureaucratic impact 85 Clearly, the legal standards and principles that transpire from judgments have the effect of reining in policy makers. This is true both in relation to regulatory processes – in that a Court's interpretation of the constitutional principles of legality or procedural fairness delineates the manner in which future policies must be formulated – and to their substantive content – in that substantive principles transpiring from judgments, such as that price control regulations may not result in medicines becoming unavailable, or that compensation paid to people who become paraplegic in motor vehicle accidents must enable them to access appropriate care in the private sector, limit the options that are available to policy makers. Judgments may therefore have the effect of significantly restricting regulatory possibilities, which could be problematic in a range of conceivable instances.115 For this reason, courts often avoid articulating substantive standards in their judgments, unless this is absolutely necessary. Indeed, commentators have ascribed the widely lamented paucity of substantive standards inherent to the Constitutional Court's 'reasonableness approach' to socio-economic rights adjudication116 precisely to this fear of straitjacketing the executive.117 This said, with the possible exceptions of N and Law Society, none of the health rights judgments discussed above can really be accused of having laid down overly exact substantive standards that, in and of themselves, prohibit the Department of Health from pursuing the healthsystem-related objectives held forth in the National Health Act. On the contrary, the two judgments that most directly guided the Department's regulatory powers, Treatment Action Campaign and New Clicks, both took care to preserve a significant margin of regulatory discretion for the Department,118 whereas the Court in New Clicks, which is arguably the judgment which has had the most debilitating bureaucratic impact, went so far as to explicitly endorse the government's policy goal and method.119 The substantive content of the judgments thus does not adequately and completely explain their impact on health system regulation. Rather, part of the answer arguably lies within the reality that ‘policies are iterative and dynamic as opposed to progressing in linear fashion from 115 See, for instance, J Berger & A Hassim ‘Regulating private power in health’ (2010) 11 ESR Review 6 who show, in relation to the North Gauteng High Court's judgment in Hospital Association of SA Ltd v Minister of Health 2010 (1) BCLR 1047 (GNP), which will be discussed in ch 5 below, that a finding of unconstitutionality, which arguably flowed from an erroneous and unduly restrictive application of constitutional principles, effectively prohibits the state from determining and publishing the annual national health reference price list. Because the judgment was (perhaps unwisely) not appealed, this regulatory avenue now appears to have been unduly foreclosed. 116 For examples of this criticism, see authorities cited in n 36 above. 117 Davis (n 4 above) 304-305. 118 See Treatment Action Campaign (n 23 above) para 135.4; New Clicks (n 51 above) paras 16, 18 (per the Court). 119 See passages in New Clicks referred to in n 62 above. 86 Chapter 3 conceptualisation to implementation and then outcomes’.120 In particular, policy outcomes are said to be contingent both on the internal political environment within which policies are conceptualised and implemented, as well as the external political environment within which they are received. Whether access-enhancing or pro-transformation judgments ultimately have a positive effect on policy, may thus likewise be expected to depend on whether both of these political environments are conducive thereto.121 As to the internal political environment, successful policy conceptualisation and implementation are said to depend both on the presence of political will within a policy-formulating body and on its capacity – understood as the necessary human skills and institutional norms and processes – to conceive and implement the policy in question.122 Where a judicial decision requires the formulation, reformulation, adaption or jettisoning of a particular policy, ultimate compliance therewith will similarly depend on both capacity and political willingness. In relation to political will, prior political or bureaucratic attitudes to an anticipated court decision appear to be particularly significant in predicting the policy-impact of the decision. Where such attitudes are favourable, policy adjustment in accordance with the eventual decision tends to be unproblematic, especially where the decision does not directly undermine the overall political project of current or envisaged regulation.123 Indeed, as the reaction of certain provincial governments to the Treatment Action Campaign decision has shown, a judgment may have the effect of removing political blockages and of enabling favourably disposed political organs to implement its substantive tenets.124 Policy may even be conducively adapted during the course of litigation, either in anticipation of a decision or in order to soften its eventual impact.125 On the other hand, and underscored by the retarded compliance of other respondents in Treatment Action Campaign, prior political hostility to a judicial decision can hinder, or ultimately deflate, its intended policy impact.126 120 E Pieterse & M van Donk ‘Incomplete ruptures: The political economy of realising socio-economic rights in South Africa’ (2002) 6 Law, Democracy & Development 193 196. 121 Pieterse & Van Donk (n 120 above) 197; GN Rosenberg The hollow hope: Can courts bring about social change? (2ed 2008) 31. 122 Pieterse & Van Donk (n 120 above) 197, 207. 123 See BC Canon ‘Studying bureaucratic implementation of judicial policies in the United States: Conceptual and methodological approaches’ in Hertogh & Halliday (n 114 above) 76 80. 124 Heywood (n 24 above) 303-304. Also argued, in a different context, by Rosenberg (n 121 above) 34. 125 Heywood (n 24 above). In a different context, this was also illustrated by the City of Johannesburg's policy responses during the course of the (eventually unsuccessful) litigation pertaining to the right of access to water in Mazibuko v City of Johannesburg (n 93 above). See specifically para 163 of the judgment. 126 Rosenberg (n 121 above) 420. Health rights litigation, individual entitlements and bureaucratic impact 87 Concerning capacity, the ability of policymakers to understand what is required of them and to adapt, formulate or replace policy accordingly, is obviously a key factor. In internal political contexts where this capacity is lacking, thin or uneven, as is the case with the South African Department of Health,127 it is possible that judgments could overwhelm, unsettle or derail policy processes rather than to merely inform their course. This is evident from the bungling regulatory response to New Clicks. Equally important to a policy maker's own attitudes towards a judgment and its capacity to react to it in a desirable manner, is the external political environments within which litigation is waged and in which judgments are received.128 Specifically, the nature, political leaning, level of organisation and clout of social movements and pressure groups that operate within these external environments have a bearing both on the manner in which a policy maker absorbs and adjusts to a particular judgment, and in which it will exercise its policy-making power in future. So, for instance, would a policy-making entity be more likely to comply with a judgment against it if its compliance were to be monitored by a vigilant and resourceful pressure group? It would also be more likely to structure its future regulatory conduct in a manner that attempts to avoid conflict with, and further litigation by, the pressure group.129 Where external pressure on a policy maker emanates from a progressive social movement such as the TAC, the overall effects thereof for the achievement of social justice will likely be constructive. However, transformation-oriented policy making can be significantly restrained where pressure groups, such as the organised groupings within the private health sector, favour the continuation of the status quo. The manner in which judgments impact on and get appropriated by social movements and pressure groups themselves thus becomes significant. It is well documented that the culmination of a legal process can have the effect of either energising or deflating a social movement or pressure group, or even of generating a counter-movement or pressure group.130 This would obviously have an effect on the extent to which the initial movement or pressure group is able to exert its influence on a policy maker. Accordingly, whether or not a judgment ultimately advances achievement of a desired political goal, seems to depend largely on the manner in which it is received and utilised by the movements within the 127 On lack of regulatory and other capacity within the Department of Health see, for instance, Eastern Cape Health Crisis Action Committee Memorandum to MEC Sicelo Gqobana: About the crisis in Eastern Cape health (September 2013) 3 available at http:// www.echealthcrisis.org (accessed 6 May 2014). 128 Sunkin (n 114 above) 53, 67-68. 129 Sunkin (n 114 above) 48. 130 See, for instance, P Gabel ‘The phenomenology of rights-consciousness and the pact of the withdrawn selves’ (1983-1984) 62 Texas Law Review 1563 1593-1597; Manfredi & Maioni (n 114 above) 251; Rosenberg (n 121 above) 415-419, 425. 88 Chapter 3 surrounding political environment,131 especially in instances where the policy maker lacks sufficient political will or capacity to independently pursue the goal. The contrast between the external political reception of the judgments in Treatment Action Campaign and New Clicks presents a telling example. Energised and empowered by its victory in the PMTCT case, the TAC could exert pressure upon the Department of Health to implement some of the mandatory aspects of the order. Indeed, as has been alluded to above, the extent to which the order was ultimately implemented corresponded largely to the extent to which the TAC had the capacity to monitor compliance. But, more importantly, the TAC was able to use the political clout gained by its victory in the limited context of PMTCT to exert greater pressure on the government to yield to its broader demands of universal access to ARV treatment. In New Clicks, on the contrary, the TAC entered the fray as amicus curiae and disengaged from it after the judgment. The private pharmacies, on the other hand, were energised by the judgment – even though, on an overall reading of it, they had little reason to be – and kept close watch over the Department of Health's subsequent regulatory activities. This meant that, even as the judgment upheld the pro-transformation arguments of the TAC and explicitly affirmed the legitimacy of pharmaceutical price regulation, the pressure that the Department of Health experienced as a result of the judgment was against such regulation. Even as compliance with the letter of the judgment could therefore have been expected to advance the transformation of the health sector, its actual policy impact was to delay such transformation. This is why we have reason to be concerned about the potential impact of the Law Society judgment, even as we support its findings in relation to access to private health care services by paraplegics and quadriplegics. Whereas the judgment mostly affirmed the state's position in the contested political arena in which it was brought (specifically the ‘industry’ surrounding compensation for injuries sustained during motor vehicle accidents), it is likely that it may have counter-transformative effects when received in a different political arena, that of health policy. This would be the case if the judgment were to be appropriated by and to have an energising effect on the (already vocal and well-resourced) opponents to National Health Insurance and to the concomitant reining in of the private health sector. In this respect, Law Society calls to mind the majority judgment of the Canadian Supreme Court in Chaoulli v Attorney General, Quebec, which found that it breached the rights to life and personal inviolability of citizens 131 Kapczynski & Berger (n 37 above) 78. Health rights litigation, individual entitlements and bureaucratic impact 89 of Quebec to forbid them to purchase private health insurance in circumstances where the public health care system was not able to provide them with adequate care within a reasonable time.132 In Canada, where the state has for years been defending the maintenance of a unitary, national health system based on need-based universal access to care, against proponents of a two-tier, private/public, resource-dependent system such as that which currently exists in South Africa, the effect of Chaoulli has reportedly been to strengthen the political position of opponents to the unitary system, whilst putting the government on the defensive.133 Given the extreme and constitutionally untenable inequalities inherent to the current state of the South African health system, it would be unfortunate if Law Society was to have a similar effect. 3.5 Conclusion It is clear that the presence of constitutional rights to have access to health care services has served both to promote and protect the individual health interests of citizens within broader policy processes. Indeed, citizens, and the social movements that represent their interests, have on several occasions relied on these rights to demand that the health system provides them with specific forms of medical care. While these claims have not always succeeded, and while courts have been loath to interpret the rights as awarding immediately claimable entitlements to specific medicines, their vindication has, on more than one occasion, resulted in an increase of access to specific health services by poor and marginalised South Africans. In other instances, health rights judgments have mandated that the health interests of citizens be taken into account in formulating and implementing policies. This has meant, for instance, that policies aimed at health-system reform could not have detrimental effects on overall access to services and, in particular, had to ensure that the health-related needs of specific, vulnerable groups of patients have been sufficiently catered for. The constitutional ensconcement of health-related rights has further clearly had the effect of energising social movements in the field of health. In particular, the TAC has consistently used the rights in furthering its struggle for adequate treatment for HIV-positive, poor South Africans. As a result of its efforts, the health system is today significantly more responsive to their plight than it was a number of years ago. 132 Chaoulli v Attorney General, Quebec 254 DLR (4th) 2005 paras 4, 40, 43 (per Deschamps J for the majority); 104-105, 122, 124, 158 (per McLachlin CJC & Major J, concurring separately). 133 Manfredi & Maioni (n 114 above) 267, 271. 90 Chapter 3 But, these positive features of health-related rights and litigation notwithstanding, this chapter has also shown that judgments vindicating the right of access to health care services may sometimes have the effect of derailing, disrupting or retarding state efforts at health system transformation, even as they protect the health-related interests of vulnerable citizens and endorse the overall transformation project. This, it has been argued, has not primarily been due to any substantive feature of the judgments themselves, but rather to the manner in which they are received and appropriated by the political bodies towards which they are directed and by the movements and pressure groups within the external political environment to which they pertain. So, given that they are constitutionally obliged to pronounce on the constitutionality of health-related policies, is there then anything that courts can do to minimise the possibility that their judgments may have an inhibiting effect on the transformation of the health system? While the impact of judgments will remain unpredictable, it would seem from the above discussion that it could sometimes be better contained through explicit judicial awareness of, and, in appropriate circumstances, responses to the internal and external political environments at which judgments are targeted, or to which they may incidentally be relevant. Awareness of internal political context could mean that courts may have to take judicial notice of lack of regulatory capacity within a state department or of evident hostility towards compliance with particular judgments, as was evident in the Treatment Action Campaign case. In both instances, such awareness may prescribe the laying down of more exact substantive standards within a judgment (so that policy makers have more clarity on what is expected of them and less scope for diversion)134 and of a more prescriptive order than would otherwise have been the case (in order to minimise the scope for non-compliance with, or undermining of an order). Indeed, it has been suggested that awareness of a serious lack of capacity or hostility against the outcome of a matter should lead a court to decide to ensure compliance with its order by exercising supervisory jurisdiction.135 Admittedly, this would be counter-intuitive for courts, which prefer not to bind executives too closely to a particular policy outcome and to preserve a wide margin of executive discretion, especially in polycentric cases. Yet, it may be that it is precisely this intuition that may restrain the progressive impact of court orders.136 Equally counter-intuitively, responding to the external political environment of a decision may require of courts explicitly to acknowledge 134 See Bilchitz (2003) (n 36 above) 10; M Pieterse ‘Legislative and executive translation of the right to have access to health care services’ (2010) 14 Law, Democracy & Development 1 19-20. 135 Heywood (n 40 above) 11; Roach & Budlender (n 43 above) 349-351. 136 As has been argued in relation to the Court’s decision not to impose supervisory jurisdiction in Treatment Action Campaign. See n 42-44 above and accompanying text. Health rights litigation, individual entitlements and bureaucratic impact 91 it in their judgments. Where a court is aware of the existence of a countertransformative pressure group associated with or interested in the outcome of litigation, it should arguably explicitly indicate such awareness and, at least, make clear which policy outcomes are not envisaged by the judgment. Court orders which aim to facilitate the transformation of the health system within a volatile external political environment, such as that handed down in New Clicks, should arguably be cast in the imperative and contain detailed guidelines on compliance, so as to minimise the extent to which external pressure groups can exploit ambiguities in judgments to resist transformation. Overall, though, it is clear that the constitutional presence of health rights has significantly altered the political landscape around healthrelated policy making and that this alteration, form the perspective of patients (both individually and collectively) has been positive. However, as health-system reform in South Africa reaches new levels of intensity, courts will increasingly be called upon to balance competing rights to health without derailing legitimate and necessary transformation efforts. This chapter has shown that doing this will most likely require greater judicial activism in polycentric matters and a more overtly political role for the judiciary than has hitherto been the norm in South Africa. This will not find universal favour, least of all, perhaps, from courts. However, by awarding courts jurisdiction over politically charged matters such as the realisation of socio-economic rights, in a constitutional dispensation that unabashedly pursues a transformative political agenda; the veil of judicial political neutrality has irrevocably been pierced.137 Continuing to hide behind it may, accordingly, do more harm than good. 137 In relation to the Constitution’s explicit politicisation of rights-based adjudication see, for instance, D Davis Democracy and deliberation: Transformation and the South African legal order (1999) 14, 47; KE Klare ‘Legal culture and transformative constitutionalism’ (1998) 14 South African Journal on Human Rights 146 147, 162-164; D Moseneke ‘The fourth Bram Fischer memorial lecture: Transformative adjudication’ (2002) 18 South African Journal on Human Rights 309 314, 317-319; Pieterse (n 2 above) 398, 417. CHAPTER 4 RIGHTS AND RESOURCES: THE 1 LIMITS OF JUSTICIABILITY?. 4.1 Introduction 1 ‘A legal right exists, in reality, only when and if it has budgetary costs’.2 It all comes down to resources in the end. Health care delivery requires skilled personnel, adequate facilities, appropriate drugs and equipment. In short, it requires money. The availability of resources, their distribution and the manner in which they are appropriated, directly determine the extent and quality of access to health care services. Resources also lie at the heart of the great majority of legal disputes pertaining to access to health care. Moreover, health care financing and resource distribution, in South Africa as elsewhere, are intensely political. The amount of public and private resources spent on health, and the distribution of those resources within and across the public and private health sectors, reflect complex, polycentric and fraught policy choices. Indeed, much of South Africa's current health-system crisis and most of the debates around solving it – through, mainly, the introduction of a National Health Insurance system – revolve around the flow and distribution of resources. In particular, much of the prevailing discourse appears to be informed by a growing sense that the significant extent of health spending in South Africa is not translating into the positive health outcomes it would appear to suggest.3 1 2 3 In places, this chapter reproduces parts of M Pieterse ‘Health care rights, resources and rationing’ (2007) 124 South African Law Journal 514. It, however, extends significantly beyond that article. S Holmes & CR Sunstein The cost of rights: Why liberty depends on taxes (2000) 19. See DE McIntyre et al ‘Health care financing and expenditure: Post-1994 progress and remaining challenges’ in HCJ van Rensburg (ed) Health and health care in South Africa (2ed 2012) 433 433; B Ruff et al ‘Reflections on health-care reforms in South Africa’ (2011) 32 Journal of Public Health Policy S184 S190 as well as sec 4.5 below. 93 94 Chapter 4 The cost of health care, as well as the polycentricity, highly specialised and politically loaded nature of health policy are typically advanced as reasons against viewing health care as the object of a human right or, at least, against regarding any right to receive health care as being legally enforceable. As is the case with other socio-economic rights, courts are traditionally regarded as being ill equipped to decide health disputes. Moreover, as is the case with other socio-economic rights, health policy matters accordingly tend to be viewed as being in the exclusive domain of legislatures and policy makers, meaning that separation of powers-related and counter-majoritarian tensions, inherent to the institution of judicial review, are particularly sharply felt in relation to them.4 Specifically, budgets and resource-allocation procedures tend to be viewed, within most legal systems, as lying beyond the realms of justciability.5 Courts are thus typically cautioned to exercise significant restraint when budgetary or financial decisions of any nature come before them and to defer to the wisdom of those primarily responsible for those decisions.6 Yet, socio-economic rights, including the right to have access to health care services, are justiciable under the Constitution. Moreover, since the Constitution determines that these rights should be realised progressively, within the available resources of the state,7 budgets and other resourcerelated dimensions of social service delivery must feature in almost all instances of socio-economic rights adjudication. This means that South African courts have not only been empowered, but mandated, to adjudicate upon issues that were traditionally thought to lie at the boundaries of the separation of powers.8 This said, we can expect that courts will be extremely hesitant to scrutinise budgetary and financial dimensions of socio-economic rights cases, lest they be accused of overstepping institutional boundaries. However, as will be elaborated below, some form of judicial scrutiny of the financial and budgetary decisions that impact on the enjoyment of the right to have access to health care services, however limited, would appear to be both unavoidable and necessary. This means that the right to have access to health care services, as well as the jurisprudence that gives effect to it, 4 5 6 7 8 See M Pieterse ‘Coming to terms with judicial enforcement of socio-economic rights’ (2004) 20 South African Journal on Human Rights 383 392-395 and authorities cited there; K Syrett Law, Legitimacy and the rationing of health care: A contextual and comparative perspective (2007) 130-132 as well as the discussion in ch 1 above at 1.4. Pieterse (n 4 above) 389; Pieterse (n 1 above) 527-528; T Roux ‘Legitimating transformation: Political resource allocation in the South African Constitutional Court’ (2003) 10 Democratization 92 92. See C Chetty ‘The right to health care services: Interpreting section 27 of the Constitution’ (2002) 17 SA Public Law 453 458; DM Davis ‘The case against the inclusion of socio-economic demands in a Bill of Rights except as directive principles’ (1992) 8 South African Journal on Human Rights 475 489; Pieterse (n 4 above) 393-394, 408 and authorities cited there. Secs 26(2) and 27(2) of the Constitution. P Lenta ‘Democracy, rights disagreements and judicial review’ (2004) 20 South African Journal on Human Rights 1 3; Pieterse (n 1 above) 528; Syrett (n 4 above) 207. Rights and resources: The limits of justiciability? 95 may well have implications for health budgeting as well as for the manner in which health resources are allocated, distributed and appropriated at various levels. This chapter pays closer attention to these implications. Section 4.2 engages with resource allocation and rationing issues at a discursive level and shows how rights discourse brings the political factors which impact upon such allocation and rationing into the public domain, hence enhancing openness, transparency and accountability. Thereafter, section 4.3 considers the ways in which rights guide resource allocation and distribution processes, focusing particularly on the normative implications of certain provisions in the South African Constitution. In section 4.4, the focus shifts to the courts. The section describes the institutional role that the Constitutional Court appears to envisage for itself in socio-economic rights matters which implicate budgets and resource allocation, and evaluates the extent to which its growing jurisprudence on the positive dimensions of constitutional rights has impacted budgetary and financial policies and processes. Section 4.5 then applies the conclusions reached to current health financing issues in South Africa, with a particular focus on National Health Insurance. In conclusion, section 4.6 reflects upon the extent to which constitutional rights have enhanced public deliberation around resources for health care. 4.2 Rights discourse, resource allocation and the unmasking of tragic choices [F]iscal limitations are not simply facts of nature. They are at least in part constructed by past and current political choices. The fiscal constraints cited by all governments must be viewed through a lens that reflects corruption, misallocation of funds, colonialism, tax policies that favour the wealthy, and a host of other human-made conditions, historical and contemporary.9 [T]hat the court was ill-equipped to answer the question, misses the point; everyone will remain ill-equipped to answer the question unless steps are taken to bring it, and the procedure by which it is considered, into the public domain.10 As is the case with other social goods and services, access to health care services is shaped by a myriad of political choices and processes pertaining to resource allocation. For instance, the degree of state interference in societal resource distribution, taxation policies, the extent and nature of social spending, the allocation of resources between competing social 9 10 LA Williams ‘Issues and challenges in addressing poverty and legal rights: A comparative United States/South African analysis’ (2005) 21 South African Journal on Human Rights 436 438. A Parkin ‘Allocating health care resources in an imperfect world’ (1995) 58 The Modern Law Review 867 876. 96 Chapter 4 needs, the balance between public and private sector social service provision, budget processes at national, provincial and local levels, as well as functional decisions on the appropriation of funds and other resources within particular budgets all determine, to a greater or lesser extent, whether resources are available for the provision of a particular health service to a particular patient in a particular context.11 Accepting, moreover, that the societal demand for health care services will almost always be greater than the amount of resources available to satisfy it, the outcome of these political choices and processes ultimately determine, in a very real way, who can access necessary medical care and who cannot.12 As such, the processes and choices are not only politically loaded, but also morally significant. They further tend to be informed by competing, and sometimes contradictory, ideologies and conceptions of justice, and are often subject to significant moral and political contestation.13 The problem is that these processes and choices tend, in the normal course of events, to be shielded from public scrutiny and deliberation. Primary budgetary and resource-distribution decisions that impact on health – such as, for instance, the amount of income tax to be levied in a particular year, the amount of public resources to be invested in the health sector and the size of a national health budget vis-à-vis the national budget for, say, housing, or sport and recreation – are typically depicted as being the outcome of expert and political decisions by duly elected representatives which have been taken for the common good and which do, as a result, not require further scrutiny. Constraints occasioned by these decisions for functionaries and decision-makers further down a resource allocation chain – such as the extent to which a limited provincial health budget makes it necessary to choose which health services to offer in a particular district or which individual patient, or pool of patients, should be given access to a particular, limited health care resource, such as kidney dialysis treatment – are in turn depicted as being ‘normal’, ‘natural’ and ‘inevitable’ consequences of self-evident resource scarcity. 11 12 13 For an exposition of the relevant contemporary processes and choices in South Africa, see A Dhai & H Etheridge ‘Resource allocation’ in A Dhai & D McQuoid-Mason (eds) Bioethics, human rights and health law: Principles and practice (2011) 143 144; N Ferreira ‘Feasibility constraints and the South African Bill of Rights: Fulfilling the Constitution’s promise in conditions of scarce resources’ (2012) 129 South African Law Journal 274 292-293. See Dhai & Etheridge (n 11 above) 143; E Elhauge ‘Allocating health care morally’ (1994) 82 California Law Review 1450 1459; LM Fleck Just caring: Health care rationing and democratic deliberation (2009) 40; RD Lamm ‘Rationing health care: Inevitable and desirable’ (1992) 140 University of Pennsylvania Law Review 1511 1512; S McLean & JK Mason Legal and ethical aspects of healthcare (2003) 15-16; Syrett (n 4 above) 33. See RJ Cook ‘Exploring fairness in health care reform’ (2004) 29 Journal for Juridical Science 1 4-5; N Daniels Just health: Meeting health needs fairly (2008) 103, 109; Ferreira (n 11 above) 275; McLean & Mason (n 12 above) 16; Pieterse (n 1 above) 514-515; Syrett (n 4 above) 91. Rights and resources: The limits of justiciability? 97 Concomitantly, health rationing decisions – namely, decisions as to which patients should be given access to particular forms of treatment within prevailing resource constraints – are depicted as involving ‘tragic’ and ‘agonizing’ choices that are necessary because of the ‘inescapable reality’ of (‘natural’ and self-evident) resource constraints. The according ‘inevitable’ and ultimately imperfect nature of such choices is then said to require that the discretion and expertise of those who have been 'forced' to make them, in the public interest, be respected.14 By depicting the resource constraints that necessitate health care rationing as self-evident and inevitable, ‘tragic reality’ discourse isolates individual rationing decisions from the broader context in which they are taken, thereby ‘de-politicizing’ them. It denies that budgets and the accompanying resource limitations that shape the context of rationing decisions are in fact ideologically loaded political phenomena rather than natural occurrences, and prevents deliberation over or questioning of the political decisions that shape resource scarcity.15 It also serves to obscure the moral, practical and subjective considerations which impact on the political and functional decisions that shape access to care, meaning that the often highly controversial and questionable principles and assumptions that underlie such decisions are left un-probed.16 Finally, it reinforces existing arguments that decisions of resource allocation, distribution and appropriation are ill-suited for deliberation by entities other than those taking the decisions and, in particular, that they are beyond the institutional competence and capacity of courts.17 It is therefore unsurprising that assertions of the expert and specialist nature of resource allocation processes, and of the ‘tragic reality’ of rationing decisions, are typically accompanied by an assertion of the separation of powers.18 14 15 16 17 18 See Fleck (n 12 above) 84; Pieterse (n 1 above) 515-518 and authorities cited there; Syrett (n 4 above) 79. One of the most often-quoted examples of this line of reasoning is the majority decision by the civil division of the British Court of Appeal in R v Cambridge Health Authority, ex parte B, where the court held that it is impossible, in ‘the real world’, to give all patients access to every form of treatment that they require, and that health authorities must therefore make ‘difficult and agonizing’ choices as to how best to allocate limited health budgets to the overall advantage. Because of this, it was held, such decisions should not be second-guessed by courts. R v Cambridge Health Authority, ex parte B [1995] 2 All ER 129 (CA) 137d-g. Elhauge (n 12 above) 1458, 1495-1496; Ferreira (n 11 above) 275; LM Fleck ‘Just health care rationing: A democratic decisionmaking approach’ (1992) 140 University of Pennsylvania Law Review 1597 1599; Parkin (n 10 above) 867, 870, 878; Pieterse (n 1 above) 516; K Syrett ‘Deference or deliberation: Rethinking the judicial role in the allocation of healthcare resources’ (2005) 24 Medicine & Law 309 314; Williams (n 9 above) 438. See Fleck (n 15 above) 1616; Fleck (n 12 above) 82, 84; MA Hall ‘Rationing health care at the bedside’ (1994) 69 New York University Law Review 693 715; D Orentlicher ‘Destructuring disability: Rationing of health care and unfair discrimination against the sick’ (1996) 31 Harvard Civil Rights, Civil Liberties Law Review 49 51-52, 59, 61-62, 71; Parkin (n 10 above) 870, 877; Pieterse (n 1 above) 517. See JA King ‘The justiciability of resource allocation’ (2007) 70 Modern Law Review 197 199; E Palmer ‘Resource allocation, welfare rights – Mapping the boundaries of judicial control in public administrative law’ (2000) 20 Oxford Journal of Legal Studies 63 77-78; Pieterse (n 1 above) 518. Ferreira (n 11 above) 275. 98 Chapter 4 Given that the rationing of resources available for medical care often involves ‘an overt sacrifice of identifiable persons’ lives or welfare’,19 legal scholars in most societies are increasingly contending that both budgeting and overarching resource distribution decisions generally, as well as the specific health resource rationing decisions and processes occasioned by them, should be based on transparent and consistent criteria, should be capable of rational as well as principled justification and should be subjected to objective scrutiny, so as to ensure that they resonate with values of accountability, equity and fairness.20 These calls are lent significant weight where a society guarantees access to health care services as an enforceable right.21 Since rights represent shared societal commitments to the protection of interests regarded as being of fundamental importance, they provide the substantive principles and moral parameters to which all public processes that impact on their enjoyment must adhere.22 This means that, in societies which guarantee rights to receive health care, societal deliberation and disagreement over the principled bases for health-related resource allocation, distribution and rationing, find expression in public deliberation over the meaning of the rights in question.23 By depicting claims to health care services as enforceable entitlements and by insisting that access to such services be facilitated progressively within available resources, the language of rights recasts every exclusion from medical care due to resource scarcity and resulting rationing processes as constituting a prima facie infringement of an enforceable right, rather than as being the inevitable consequence of an unavoidable, tragic choice. Since infringements of justiciable human rights may not be tolerated unless they are capable of principled and cogent justification,24 relevant decision makers and political organs may thus be called upon to justify the extent to which their decisions impact on individual or collective enjoyment of health-related rights, according to human-rights principles.25 This duty of justification applies to all levels of decision-making and thus extends beyond the outcome of individual decisions over access to particular health services in the context of specific resource constraints, to 19 20 21 22 23 24 25 Hall (n 16 above) 719. See MG Bloche ‘The invention of health law’ (2003) 91 California LR 249 301-302, 309, 321-322; Daniels (n 13 above) 103, 109, 117; Fleck (n 15 above) 1621; Fleck (n 12 above) 88-95; R James & D Longley ‘Judicial review and tragic choices: Ex parte B’ (1995) Public Law 367 373; D Mechanic ‘Professional judgment and the rationing of medical care’ (1992) 140 University of Pennsylvania Law Review 1713 1746; Parkin (n 10 above) 868, 871-872, 875-877; Palmer (n 17 above) 78; Syrett (n 15 above) 310; Syrett (n 4 above) 61-62, 238. Syrett (n 15 above) 318; Syrett (n 4 above) 64. Fleck (n 15 above) 184. Daniels (n 13 above) 313-315. See, for example, R Dworkin Taking rights seriously (1977) 198-200, 204, 268-269, R West ‘Rights, capabilities and the good society’ (2001) 69 Fordham Law Review 1901 1917. Cook (n 13 above) 11. Rights and resources: The limits of justiciability? 99 encompass also the substantive motivations, political decisions and other structural factors that shape such constraints. Institutionally, making social goods such as health care services the objects of rights-based protection, extends the reach of mechanisms aimed at ensuring accountability in public decision-making also to decisions and processes that determine the availability and distribution of such goods. Therefore, unlike in constitutional systems that do not view access to health care services as the object of a right, courts in countries such as South Africa have the mandate, as well as the required ‘public policy base’, to test the outcomes of resource allocation and rationing decisions and processes against articulated constitutional standards.26 According to Keith Syrett: Conceptualisation of disputes as to access to healthcare resources as raising questions of rights thus provides a firmer foundation for judicial willingness to engage in adjudication within this field, which is clearly the necessary first step to assumption of a deliberative function by the courts. However, the prospects for deliberation are significantly enhanced by the structure of human rights instruments and the nature of rights adjudication.27 Courts will therefore increasingly be the fora in which the justness of health care resource allocation is deliberated.28 As in the case of other socio-economic rights, the constitutional entrenchment of justiciable rights to health care services thus demands a rethink of conventional judicial approaches to the various political processes and decisions that determine the distribution of resources within society.29 The justiciability of health rights empowers individuals who have been adversely affected by political decisions not to direct resources towards the satisfaction of their health-related needs, to use the legal process to challenge the validity of such decisions. Courts, in turn, must decide whether challenged resource allocation and rationing decisions are constitutionally justifiable, and can no longer shelter behind the 'tragic reality' and discretionary nature of such decisions. 26 27 28 29 On the absence of such a ‘public policy base’ where health care is not viewed as a right, see MA Hall & GF Anderson ‘Health insurers’ assessment of medical necessity’ (1992) 140 University of Pennsylvania Law Review 1637 1682; Palmer (n 17 above) 88; JA Siliciano ‘Wealth, equity, and the unitary medical malpractice standard’ (1991) 77 Virginia Law Review 439 479. Syrett (n 4 above) 234-235. Cook (n 13 above) 11, 15, 23. See also South African Human Rights Commission Report Public Inquiry: Access to Health Care Services (2008) 30. See TJ Bollyky ‘R if C > P + B: A paradigm for judicial remedies of socio-economic rights violations’ (2002) 18 South African Journal on Human Rights 161 164; Davis (n 6 above) 480, 484-485; S Liebenberg ‘South Africa’s evolving jurisprudence on socioeconomic rights: An effective tool in challenging poverty?’ (2002) 6 Law, Democracy & Development 159; AJ Rycroft ‘The protection of socio-economic rights’ in H Corder (ed) Essays on law and social practice in South Africa (1988) 267 268. 100 Chapter 4 4.3 Rights as directives for resource allocation and rationing In most societies, one of the main obstacles to the development of a coherent and morally justifiable approach to health-related resource allocation and rationing is the lack of normative consensus over the values that such processes and decisions must serve and the priorities that they should reflect. In both the United States and the United Kingdom, for instance, it has been argued that, in order to develop a coherent and meaningful set of guiding principles to which individual rationing decisions must adhere and against which their outcomes may be tested, society would have to arrive at a shared political conception of the ‘common good’ that may guide health care policy and rationing processes, by way of a Rawlsian process of public deliberation.30 In South Africa, it is arguable that the post-apartheid constitutional negotiation and drafting processes represented an attempt at such public deliberation and that a shared conception of the political ‘common good’ for post-apartheid South Africa accordingly emerges from the text of the Constitution. The Constitution is often described as being ‘transformative’ in its orientation, in that it encapsulates a particular egalitarian and socialdemocratic political vision and requires of its interpretative community to participate in the achievement of this vision.31 Since the constitutional vision not only influences the content of South African law and policy but also applies to both public and private conduct,32 it is to be expected that the substantive values reflected in the constitutional text would guide and constrain resource allocation and rationing decisions at various levels. The ‘culture of justification’ fostered by the structure of the South African Bill of Rights – which, in section 36, determines that rights may be limited only by way of a law of general application that is ‘reasonable and justifiable in an open and democratic society based on human dignity, equality and freedom’ – further means that all resource allocation decisions and processes need to be justifiable with reference to these substantive values. 30 31 32 See RH Blank ‘Regulatory rationing: A solution to health care resource allocation’ (1992) 140 University of Pennsylvania Law Review 1573 1576; Bloche (n 20 above) 303307; Fleck (n 15 above) 1598, 1621; Fleck (n 12 above) 152-160, 163; Hall (n 16 above) 702-703, 744-745; KP Quinn ‘Viewing health care as a common good: Looking beyond political liberalism’ (2000) 73 Southern California Law Review 277 289, 305, 324325; Syrett (n 4 above) 111-116. R Dworkin ‘Justice in the distribution of health care’ (1993) 38 McGill Law Journal 883 888-894, for example, argues that health consumers in the Rawlsian original position would agree to prioritise the delivery of cost-effective, primary health care services over other, more ‘wasteful’, health care expenditures. See KE Klare ‘Legal culture and transformative constitutionalism’ (1998) 14 South African Journal on Human Rights 146 153; D Moseneke ‘The fourth Bram Fischer memorial lecture: Transformative adjudication’ (2002) 18 South African Journal on Human Rights 309 314, 318-319; M Pieterse ‘What do we mean when we talk about transformative constitutionalism?’ (2005) 20 SA Public Law 155. See sec 8(1)-(2) of the Constitution. Rights and resources: The limits of justiciability? 101 This, importantly, enhances accountability and public deliberation over matters of resources.33 The impact of rights as substantive directives for resource allocation and appropriation policies and processes, in principle, extends right to the upper tier of resource allocation and appropriation decisions. For instance, the constitutional presence of justiciable socio-economic rights impacts on budgeting and intergovernmental fiscal relations by, first, requiring that relevant processes duly consider the state's socio-economic constitutional obligations and enable compliance therewith, and, secondly, that resource allocations aimed at satisfying such obligations be prioritised over other forms of expenditure – on, for instance, defence, arts, or sports.34 Over and above the judicial process, accountability at this level in South Africa is fostered, first, through section 214 of the Constitution, which determines that budget allocations must take into account, inter alia, the need to ensure effective basic service provision, developmental needs and the legal obligations of provincial and local government, and, secondly, through the South African Human Rights Commission's powers to require financial arms of government to report on their endeavours in pursuit of the progressive realisation of socio-economic rights, under section 184(3) of the Constitution.35 More concretely, the normative standards contained within the justiciable health-related rights in the Bill of Rights, themselves constitute both a moral basis and a substantive benchmark for health-related resource allocation and rationing policies and processes. The content that courts award to these rights, in the course of adjudicating disputes involving them, will therefore impact significantly on the relevant resource prioritisation processes and practices.36 For instance, constitutional health rights may be interpreted to require that resource-allocation decisions prioritise the satisfaction of certain vital and urgent needs, or the needs of particularly vulnerable sectors of society, over others.37 33 34 35 36 37 See Syrett (n 4 above) 222-223, 236-238, arguing that a South African style conception of ‘law as justification’ would be useful to adopt in pursuing accountability for health resource rationing in the UK. See K Creamer ‘Finance and the realisation of socio-economic rights: Analysing the Human Rights Commission's s 184(3) review of the financial authorities’ in Centre for Human Rights Report on the realisation of socio-economic rights (2000) 13 13, 18, 21. See C Barberton ‘Paper tigers? Resources for socio-economic rights’ (1999) 2 ESR Review 6 8; Creamer (n 34 above) 14. P Carstens & D Pearmain Foundational principles of South African medical law (2007) 118119; Daniels (n 13 above) 314-315; S Liebenberg Socio-economic rights: Adjudication under a transformative constitution (2010) 142. On these prioritising dimensions of socio-economic rights generally, see D Bilchitz ‘Towards a reasonable approach to the minimum core: Laying the foundations for future socio-economic rights jurisprudence’ (2003) 19 South African Journal on Human Rights 1 11-12; WA Landman & LD Henley ‘Rationing and children’s constitutional health-care rights’ (2000) 19 South African Journal of Philosophy 41 42; S Liebenberg ‘The value of human dignity in interpreting socio-economic rights’ (2005) 21 South African Journal on Human Rights 1 15, 18, 22; D Moellendorf ‘Reasoning about 102 Chapter 4 To further illustrate this, it is useful to consider a number of possible interpretations of the health-related rights in the South African Constitution, such as those that prevail in international law – to which courts must refer in interpreting the rights in the Bill of Rights, in terms of s 39(1) of the Constitution38 – or those that have through the years been mooted in the literature. 4.3.1 Possible normative directives embodies by health-related rights in the South African Constitution Section 27(1)(a) of the Constitution determines that ‘everyone has the right to have access to health care services, including reproductive health care’. The extent to which this right can be enforced at any given time is limited by the proviso in section 27(2) that ‘the State must take reasonable legislative and other measures, within its available resources, to achieve the progressive realisation of [the right]’. Whereas the entitlement conferred by section 27(1)(a) is admittedly broad and open-ended, the provision may seemingly uncontroversially be interpreted to impose certain priorities in relation to resource allocation and appropriation. For instance, section 27(1)(a)'s determination that 'everyone' is entitled to access health care services may be understood to indicate that resource allocation and rationing decisions may not be unfairly discriminatory and should adhere to the dictates of the right to equality, substantively understood.39 This is not to say that policies which structure differential access to particular health care services between individuals or classes of persons will never be constitutionally justifiable,40 but does require such policies to be grounded in justifiable medical criteria, to be demonstrably 37 38 39 40 resources: Soobramoney and the future of socio-economic rights claims’ (1998) 14 South African Journal on Human Rights 326 332; C Scott & P Alston ‘Adjudicating constitutional priorities in a transnational context: A comment on Soobramoney’s legacy and Grootboom’s promise’ (2000) 16 South African Journal on Human Rights 206 244-245, 252. The content and implications of the right to health in international law was discussed in chapter 1 at 1.3.1. UNCESCR General Comment 14 The Right to the Highest Attainable Standard of Health (Art 12 of the Covenant) (2000) paras 18-19. See further P de Vos ‘Grootboom, the right of access to housing and substantive equality as contextual fairness’ (2001) 17 South African Journal on Human Rights 258 265-266; C Ngwena ‘Access to health care as a fundamental right: The scope and limits of section 27 of the Constitution’ (2000) 25 Journal for Juridical Science 1 3, 7-9, 27. See, for instance, arguments advanced by V Black et al ‘The constitutional justification and the ethical arguments for granting enhanced HIV treatment for selected priority groups in South Africa's antiretroviral treatment programme’ (2011) Tydskrif vir die Suid-Afrikaanse Reg 496, in relation to diffferentiated early access to HAART therapy by different ‘categories’ of HIV-positive persons. Rights and resources: The limits of justiciability? 103 unrelated to stereotypes, stigma and group-based discrimination,41 and to have due regard for individual health needs, especially amongst members of socially vulnerable groups. The notion of equality as encompassing ‘full and equal enjoyment of all rights and freedoms’,42 further requires that everyone has equally meaningful and beneficial access to relevant health care services, rather than equally inadequate access.43 As to the extent of the entitlement of access to care, if the notion ‘health care services’ is interpreted to include primary, secondary as well as tertiary health care services, an argument may further be made that, much as policies which privilege access to expensive tertiary care for a few at the cost of access to primary care for many others are unlikely to pass constitutional muster,44 resource allocation or rationing processes may also not simply sacrifice the availability of high-level, specialised and expensive care in the interests of cost-effectiveness.45 When read with the obligation of the state to ‘respect’ the rights in the Bill of Rights in section 7(2) of the Constitution, section 27(1)(a) may further be understood to require that resource allocation and rationing decisions respect existing access to health care services and that they may therefore not have the effect of unjustifiably obstructing or diminishing such access – by, for instance, directing resources away from the provision of services to which patients already have access.46 Similarly, the provision's explicit mention 41 42 43 44 45 46 On how stigmatised notions of individual ‘worthiness’ of care may impact on resource allocation and policy decisions and hence unfairly deny access to care see, for instance, M Pieterse ‘'Impeding access? Stigma, individual responsibility and access to postHIV-exposure-prophylaxis (PEP) in South Africa’ (2011) 30 Medicine & Law 279 281282. As per sec 9(2) of the Constitution. This relates to philosophical arguments that the principle of equality should not operate, in rationing disputes, to demand or allow for a situation of ‘equality of the graveyard’. See, for instance, D Bilchitz ‘Is the Constitutional Court wasting away the rights of the poor? Nokotyana v Ekurhuleni Metropolitan Municipality’ (2010) 127 South African Law Journal 591 603-604. See E Durojaye ‘Monitoring the right to health and sexual and reproductive health at the national level: Some considerations for African governments’ (2009) 42 Comparative International Law Journal of South Africa 227 250. Accordingly, Landman & Henley (n 37 above) 43-47 contend for the adoption of ‘nonabandonment’ of specialised care as a rationing principle, in relation to the provision of health services to children. See UNCESCR General Comment 14 (n 39 above) paras 33-34, 50; AR Chapman ‘Core obligations related to the right to health and their relevance for South Africa’ in D Brand & S Russell (eds) Exploring the core content of socio-economic rights: South African and international perspectives (2002) 35 46; DM Chirwa ‘The right to health in international law: Its implications for the obligations of state and non-state actors in ensuring access to essential medicine’ (2003) 19 South African Journal on Human Rights 541 559, 564; Liebenberg (n 29 above) 163, 178; K Pillay ‘South Africa’s commitment to health rights in the spotlight: Do we meet the international standard?’ in Brand & Russell (this note) 61 67. See, however, S Liebenberg ‘Grootboom and the seduction of the negative/positive duties dichotomy’ (2011) 26 SA Public Law 37, who warns that a judicial preference for vindicating negative, rather than positive, obligations may mean that upholding the obligation to respect whilst adopting a more deferent approach in relation to the obligations to protect, promote and fulfill may be countertransformative in that it is geared towards preserving the status quo and thus to entrenching existing unequal access to socio-economic rights. 104 Chapter 4 of reproductive health care services may be read to indicate that resource allocation processes should prioritise the facilitation of access to such services. Moreover, it is possible to interpret section 27(1)(a), in accordance with international law, as imposing a 'minimum core obligation' on the state, which would require of budgeting and rationing processes, for instance, to prioritise access to minimum essential health services that are necessary to ensure human survival, such as primary health care services, immunisation against major infectious diseases and access to essential drugs, as defined by the World Health Organization (WHO).47 Aligning section 27(1)(a) with a minimum core understanding of the right to health in international law could therefore infuse the provision with the valueladen rationing directives inherent in the WHO's definition of terms such as 'primary health care' and 'essential drugs', while simultaneously leaving scope for the further elaboration of these terms at local political or functional levels. From the above, it is clear that there are a variety of different ways in which the courts may interpret section 27(1)(a), and that the provision's guiding impact on resource allocation, distribution and appropriation policies and processes will therefore, to a large extent, depend on which aspects of the right courts choose to emphasise.48 The extent of this impact will further turn on how such interpretation links to content given to the determination in section 27(2) that the right of access to health care must be realised progressively, within available resources. Apart from limiting the state's obligation in terms of the right of access to health care to what can be done within prevailing resource constraints, and thereby carving down the ambit of the enforceable entitlement in section 27(1)(a), the resource-limitation contained in section 27(2) appears to also provide a constitutional basis for health rationing decisions, by acknowledging that resource scarcity may sometimes justify the nonsatisfaction of particular health-related needs, particularly in the short term. However, rather than to isolate rationing decisions from judicial scrutiny, this acknowledgment indicates that rationing and resource 47 48 See, for example, UNCESCR General Comment 3: The Nature of State Parties’ Obligations (Art 2, para 1 of the Covenant) (1990) para10; UNCESCR General Comment 14 (n 39 above) paras 43-44; WHO Declaration of Alma-Ata (1978) para VI. On the implications of a ‘minimum core approach’ to sec 27(1)(a), see further Bilchitz (n 37 above) 11-18; Bollyky (n 29 above) 184; Chapman (n 46 above) 35, 37, 54; Liebenberg (n 37 above) 15, 18, 22; M Pieterse ‘Resuscitating socio-economic rights: Constitutional entitlements to health care services’ (2006) 22 South African Journal on Human Rights 473 479-484; Scott & Alston (n 37 above) 227, 250. This fact is often used to justify judicial caution in this regard – see, for instance, R Dixon ‘Creating dialogue about socio-economic rights: Strong-form versus weak-form judicial review revisited’ (2007) 5 International Journal of Constitutional Law 391 401402. Rights and resources: The limits of justiciability? 105 allocations decisions may be probed for adherence to the moral imperatives embodied by section 27(1)(a).49 If this is accepted, then the meaning that courts award to the concepts in section 27(2) will also determine the extent of the state's constitutional responsibilities when it comes to the distribution of health-related resources. For instance, if the resource limitation in section 27(2) is interpreted in accordance with the prevailing international law standard, namely that states must realise socio-economic rights within the maximum of their available resources, it may, for example, be understood to require that the state harness and control private resources under its jurisdiction in pursuit of the realisation of the right – by, for example, channelling resources that are currently restricted to the private health sector towards the public health system – or that the state must procure necessary additional resources through, for instance, requesting international assistance, or increasing domestic taxation.50 Much would further turn on the content awarded to the concept ‘resources’. First, whether the concept is given a wide or narrow meaning will determine the levels at which resource allocation and rationing processes can be scrutinised for adherence to the substantive dictates of section 27(1)(a). If, for example, the concept is interpreted broadly, so as to extend beyond individual budget line items, to encompass the totality of resources available to the state, this would mean that all resource allocation decisions – up to and including, for instance, the annual determination of the national budget – can be subjected to such rightsbased scrutiny.51 Secondly, if the concept was to be interpreted to include not only financial resources but also human, infrastructural, organisational 49 50 51 Dhai & Etheridge (n 11 above) 146. On the link between rationing and the notion of ‘access’ to care, see Carstens & Pearmain (n 36 above) 118-119. On these and other implications of the international standard, which derives from the wording of the resource limitation in art 2(1) of the ICESCR see, for example, UNCESCR General Comment 3 (n 47 above) paras 11, 14; Principle 26 of the Limburg Principles on the Implementation of the International Covenant on Economic, Social and Cultural Rights UN Doc E/CN 4/1987/17/Annex (1987); MCR Craven The International Covenant on Economic, Social, and Cultural Rights: A perspective on its development (1995) 132-133, 137, 145; S Liebenberg ‘The International Covenant on Economic, Social and Cultural Rights and its Implications for South Africa’ (1995) 11 South African Journal on Human Rights 359 366; RE Robertson ‘Measuring state compliance with the obligation to devote the “maximum available resources” to realizing economic, social and cultural rights’ (1994) 16 Human Rights Quarterly 693 699-700, 712. Authors arguing for a similar interpretation of the resource specification in sec 27(2) of the Constitution have included D Bilchitz ‘Health’ in S Woolman et al (eds) Constitutional law of South Africa (2ed, 2005) Ch 56A 45; Creamer (n 34 above) 21; C Heyns & D Brand ‘Introduction to socio-economic rights in the South African Constitution’ (1998) 2 Law, Democracy & Development 153 159-60; Scott & Alston (n 37 above) 253, 262-263, G van Bueren ‘Alleviating poverty through the Constitutional Court’ (1999) 15 South African Journal on Human Rights 52 58-60. For arguments in favour of such an interpretation see, for instance, Barberton (n 35 above) 7; Bilchitz (n 50 above) 43-44; P de Vos ‘Pious wishes or directly enforceable human rights?: Social and economic rights in South Africa’s 1996 Constitution’ (1997) 13 South African Journal on Human Rights 67 98; Moellendorf (n 37 above) 330-332; Van 106 Chapter 4 and technological resources,52 a number of non-financial rationing processes and policies – for instance, decisions on the geographical distribution of health care facilities, professionals and high-tech equipment – would also be brought within the provision's ambit.53 Furthermore, it is arguably also significant that the Constitution grants a number of other health-related rights that do not contain a resourcerelated limitation, or a standard of progressive realisation, similar to that in section 27(2). These include the right not to be refused emergency medical treatment in section 27(3), the right of children to basic health-care services in section 28(1)(c) and the right of detained persons to adequate medical treatment at state expense in section 35(2)(e) of the Constitution. It may be argued that the absence of a resource-limitation in these provisions indicate that immediate provision of the health services that they imply should enjoy priority over the progressive provision of other services covered only by the generic right of access to care.54 Moreover, a generous and purposive interpretation of the right to life in section 11 of the Constitution could invite similar conclusions in relation to resource distribution or rationing outcomes which threaten the survival of patients.55 Clearly, then, the kind of content that courts award to health-related provisions in the Constitution will have a significant guiding impact on policies and processes that determine the amount of resources available towards the realisation of these rights, as well as the manner in which such resources are appropriated towards competing health needs. This guiding role will therefore depend quite closely on the willingness of courts to 51 52 53 54 55 Bueren (n 50 above) 63. This is further consistent with the interpretation of the resource limitation in art 2(1) of the ICESCR – see Craven (n 50 above) 137; Robertson (n 50 above) 698. As motivated by, for instance, Robertson (n 50 above) 704; Van Bueren (n 50 above) 61-62. For further examples of how rationing of non-financial resources impact on enjoyment of the right to have access to health care services in this context, see R Gaigher ‘The political pathology of health care policy in South Africa’ (2000) 32 Acta Academica 44 49-51, 55-56; SAHRC (n 28 above) 25-26; 39. For similar arguments in relation to sec 27(3) see Liebenberg (n 29 above) 163; Scott & Alston (n 37 above) 251; F van Oosten ‘Financial resources and the patient’s right to health care: Myth and reality’ (1999) 32 De Jure 1 13. In relation to sec 28(1)(c), see P de Vos ‘The economic and social rights of children and South Africa’s transitional Constitution’ (1995) 10 SA Public Law 233 255-256; Landman & Henley (n 37 above) 42-43; Scott & Alston (n 37 above) 230, 258-260; Van Bueren (n 50 above) 55-59; F Viljoen ‘Children’s rights: A response from a South African perspective’ in Brand & Russell (n 46 above) 201 203, 205-06. In relation to sec 35(2)(e), see E de Wet The constitutional enforceability of economic and social rights: The meaning of the German constitutional model for South Africa (1996) 110; JC Mubangizi ‘Public health, the South African Bill of Rights and the socio-economic polemic’ (2002) Tydskrif vir die SuidAfrikaanse Reg 343 349. See David O’Sullivan ‘The allocation of scarce resources and the right to life under the European Convention on Human Rights’ (1998) Public Law 389 394-395; M Pieterse ‘A different shade of red: Socio-economic dimensions of the right to life in South Africa’ (1999) 15 South African Journal on Human Rights 372 374-375, 379, 384-385; Scott & Alston (n 37 above) 251-252, 255. Rights and resources: The limits of justiciability? 107 engage and elaborate the content of the constitutional rights and obligations concerned.56 This means that much will turn on the level of scrutiny to which courts are prepared to subject socio-economic laws and policies in cases where breaches of socio-economic rights are alleged and, in particular, on the extent to which they are prepared to engage with the limits placed by resource scarcity on the extent to which socio-economic rights can be enforced at any given time.57 4.3.2 Institutional obstacles to providing normative resource-related directives through the courts As alluded to previously, the most decisive obstacle faced by courts, in articulating standards to which resource allocation and distribution policies and processes must adhere and in scrutinising challenged laws, policies and decisions against these substantive standards, is the operation of the doctrine of separation of powers in relation to budgetary and financial decision-making. Under most conceptions of the doctrine, such decision-making is portrayed as the exclusive territory of the political branches of state. Courts are thought to lack the majoritarian backing, appreciation for the polycentric consequences of budgetary decisions and the financial expertise that is required to participate in such decisions. They are accordingly cautioned to exercise significant restraint when budgetary or financial decisions come before them and to defer to the wisdom of those primarily responsible for these decisions.58 When it comes to the rationing of resources for health care, matters are further complicated by the fact that rationing decisions are by their nature polycentric – in that every subtle variation of a rationing decision may have a significant impact on the interests of a potentially vast number of potential recipients of medical care59 ‒ the fact that the substantive principles according to which rationing processes are directed and scrutinised are bound to be the subject of significant public contestation60 and the fact that that they tend to involve a degree of clinical medical judgment which, given courts’ obvious lack of relevant scientific knowledge and training, is normally understood to require a significant degree of judicial deference.61 Precisely because courts’ pronouncements on the meaning of the relevant constitutional rights will have the effect of 56 57 58 59 60 61 Liebenberg (n 36 above) 142. Pieterse (n 4 above) 409. See Chetty (n 6 above) 458; Davis (n 6 above) 489; Pieterse (n 4 above) 393-394, 408 and authorities cited there. Parkin (n 10 above) 874. I have discussed the difficulties relating to the involvement of courts in polycentric matters elsewhere – see Pieterse (n 4 above) 392-395. Dixon (n 48 above) 401-402. See Hall (n 16 above) 715; Hall & Anderson (n 26 above) 1650, 1675; C Ngwena ‘Access to health care and the courts: A note on Minister of Health v Treatment Action Campaign’ (2002) 17 SA Public Law 463 470; Orentlicher (n 16 above) 51-52, 59, 61-62, 71; Parkin (n 10 above) 870, 877; Scott & Alston (n 37 above) 243. 108 Chapter 4 substantively restricting the ways in which the state may allocate and distribute resources between competing health needs, they are therefore required to exercise significant caution in this regard. However, since the extent to which socio-economic rights may be enforced at any given time is circumscribed by the resources at the state's disposal, as well as by the manner in which functionaries and health care professionals dispose of such resources, the justiciability of socio-economic rights means that some form of scrutiny of financial, budgetary and rationing decisions, however limited, is both unavoidable and necessary. Absolute deference to the financial and budgetary decisions of the political branches, or to the rationing decisions of health administrators or medical professionals, would have the effect of awarding them limitless discretion over the manner in which resources are appropriated in order to satisfy constitutional obligations. This would drain socio-economic rights of their remedial potential, since it would mean that the state could justify every instance of non-compliance with socio-economic rights by asserting resource-scarcity or, more cynically, could shirk its constitutional responsibilities by allocating minimal funds to the realisation of socioeconomic rights.62 Such boundless discretion would also significantly complicate the meaningful scrutiny of rationing decisions, since it would preclude courts from probing the 'fact' of resource scarcity underlying such decisions, hence obscuring the bases and criteria for rationing decisions and diminishing the accountability of rationing actors.63 The challenge, therefore, is to arrive at an appropriate balance between judicial deference and vigilance that appreciates courts' real limitations without overly restricting the important normative dimensions of the rights that they are called upon to enforce. At least, courts should not simply accept assertions of resource-scarcity by executive officials or rationing actors, without enquiring into the accuracy thereof. Where resources are woefully inadequate to meet constitutional obligations, where budgeting and rationing processes fail to reflect constitutional priorities and where resources are misappropriated or misspent, courts must say so and must insist on remedial action.64 It must be remembered that courts' lack of qualification to themselves engage in budgeting or financial policy-making does not render them ill-equipped to scrutinise budgetary or financial 62 63 64 See Bilchitz (n 50 above) 44; Creamer (n 34 above) 23; De Vos (n 51 above) 97; Ferreira (n 11 above) 293-294; S Liebenberg ‘The right to social assistance: The implications of Grootboom for policy reform in South Africa’ (2001) 17 South African Journal on Human Rights 232 255; Liebenberg (n 36 above) 195-197; Ngwena (n 39 above) 7; J Sarkin ‘Health’ (1997/8) 8 SA Human Rights Yearbook 97 103; Syrett (n 4 above) 243. See A Govindjee & M Olivier ‘Finding the boundary - The role of courts in giving effect to socio-economic rights in South Africa’ (2007) 21 Speculum Juris 167 176; Moellendorf (n 37 above) 332. Barbeton (n 35 above) 6-8; Ferreira (n 11 above) 293; Liebenberg (n 36 above) 197-198. Rights and resources: The limits of justiciability? 109 policies for adherence to constitutional directives.65 Their challenge is to devise appropriate standards of review that grant a sufficient margin of discretion to decision-makers, while demanding appropriate justification for infringements of constitutional rights. Moreover, in instances where such justification is not forthcoming, it must be remembered that the budgetary and policy repercussions of judicial interventions cannot in and of themselves prohibit courts from complying with their constitutional obligation to award appropriate relief for infringements of the Bill of Rights.66 4.4 Assessing the impact of South African human rights jurisprudence on health budgeting and financing In the light of the above, South African courts in the early constitutional era were understandably extremely cautious when having to negotiate socio-economic policy terrain, in particular in contexts of resource scarcity. Early indications were that socio-economic rights' perceived resource intensity would significantly limit the extent to which courts would be willing to enforce them. Prior to the Constitutional Court's first socio-economic rights decision, two high court judgments took resource availability into account in deciding upon the extent of health-related rights. In Collins v Administrator, Cape, the Cape High Court held that the standard of medical care to which people are entitled in the context of medical negligence claims had to be determined with reference to prevailing resource constraints. A baby suffered severe and irreversible brain damage when her tracheostomy tube became displaced at a time when only one of two allocated nurses, who was unable to replace it correctly, was present in the high care ward where she was being treated. In deciding whether the hospital was liable for damages, the court decided that a hospital authority could not be expected to render a standard of care that was palpably beyond its financial and human resource capacity, and that the question of negligence had to be determined with reference to whether or not it was reasonable for the hospital to allocate its limited nursing staff in the way that it did.67 In the 65 66 67 See Ferreira (n 11 above) 293; Govindjee & Olivier (n 63 above) 177; Pieterse (n 4 above) 408-409 and authorities cited there; C Steinberg ‘Can reasonableness protect the poor? A review of South Africa’s socio-economic rights jurisprudence’ (2006) 123 South African Law Journal 264 281; Syrett (n 4 above) 241-242. On the factors to be taken into account in balancing competing institutional and constitutional tensions in this context, see generally Bollyky (n 29 above) as well as Govindjee & Olivier (n 63 above) 181-182. Collins v Administrator, Cape 1995 (4) SA 73 (C) 81I-82D, 83F-G. For discussion of the judgment in the context of the right to have access to health care services, see Van Oosten (n 54 above) 8. 110 Chapter 4 circumstances, the hospital was found to have been negligent and, accordingly, liable. In Van Biljon v Minister of Correctional Services, the Cape High Court ordered that, in terms of prisoners’ right to adequate medical treatment at state expense under section 35(2)(e) of the Constitution, two HIV-positive prisoners had to be provided with the anti-retroviral drug AZT, which had been medically prescribed to them. The Court was not prepared to make a similar finding in relation to two further applicants, who had not been prescribed the drug, as it was not prepared to second-guess the medical decision as to whether to prescribe the treatment.68 In deciding whether the non-provision of the drug to the first two applicants fell foul of section 35(2)(e), the court found that the question of whether a particular form of medical treatment could be regarded as 'adequate' in terms of the provision had to be decided with reference to, amongst other factors, its cost in relation to its effectiveness. Since there was no less expensive but sufficiently effective treatment available at the time, and since the state could not show that it could not afford to provide the two applicants with the treatment, it was held to fall within the scope of the applicants’ entitlement.69 While generally lauded for the manner in which it vindicated the applicants' right to receive treatment, the Van Biljon judgment was nevertheless criticised for viewing the affordability of treatment as a factor impacting on the scope of the right to medical care in prison, rather than as placing a limit on its enjoyment, which would have required justification in terms of section 36 of the Constitution if it was to pass constitutional muster.70 Nevertheless, Van Biljon highlights important considerations pertaining to the cost-effectiveness of particular forms of treatment, which need to feature somewhere in judicial deliberations over access to medical care. The Constitutional Court's first socio-economic rights matter, Soobramoney v Minister of Health (KwaZulu-Natal), presented it with a classic health resource rationing ‘dilemma’. The crux of the matter was that the hospital in question did not possess sufficient resources to provide kidney dialysis to all who required it and thus felt compelled to devise ‘admissibility criteria’ which regulated access to the treatment. The Court rejected Mr Soobramoney’s arguments that these criteria – which determined that dialysis would be provided only to patients whose conditions could be cured thereby, or who were clinically eligible for a kidney transplant, thereby excluding Mr Soobramoney, whose condition 68 69 70 Van Biljon v Minister of Correctional Services 1997 (4) SA 441 (C) paras 33-37, 61. Paras 49-50, 60. See for instance F Mdumbe ‘Socio-economic rights: Van Biljon versus Soobramoney’ (1998) 13 SA Public Law 460 462-463; Van Oosten (n 54 above) 10. Rights and resources: The limits of justiciability? 111 was chronic and whose general state of health ruled out the possibility of a transplant – violated his rights to life and not to be refused emergency medical treatment, holding that neither of the alleged rights were applicable to the matter. This was respectively because the Court was not prepared to interpret the right to life in a manner that would require the privileging of treatment for life-threatening diseases over the provision of other forms of care and because Mr Soobramoney’s condition was chronic and did not constitute a medical emergency.71 Instead, the Court held that the matter had to be decided on the basis of the right of access to health care services under section 27(1)(a) of the Constitution. The ambit of this right, in turn, had to be understood with reference to the resource specification in section 27(2) of the Constitution.72 The Court found that the ‘admissibility criteria’ – which were devised jointly by hospital administrators and doctors – were necessitated by severe resource shortages at the hospital’s renal unit, which were in turn occasioned by shortages in, first, the general hospital budget and, secondly, the budget of the provincial health department.73 Reiterating the view expressed by the British Court of Appeal in R v Cambridge Health Authority, ex Parte B that courts are ill equipped to secondguess the ‘difficult and agonising’ decisions taken by health care professionals and administrative officials in such circumstances,74 the Court stated: The provincial administration which is responsible for health services in KwaZulu-Natal has to make decisions about the funding that should be made available for health care and show how such funds should be spent. These choices involve difficult decisions to be taken at the political level in fixing the health budget, and at the functional level in deciding upon the priorities to be met. A court will be slow to interfere with rational decisions taken in good faith by the political organs and medical authorities whose responsibility it is to deal with such matters.75 Given that the admissibility criteria were rational, had been devised and applied in good faith and aimed to maximise effective access to the available treatment, and since the appellant did not suggest that the criteria were unreasonable or were applied unfairly or irrationally, they were found to pass constitutional muster.76 The Soobramoney decision has, through the years, attracted a wide range of criticism. First, the Court appeared unwilling to engage substantively with the meaning of the rights implicated in the matter. 71 72 73 74 75 76 Soobramoney v Minister of Health (KwaZulu-Natal) 1997 (4) SA 765 (CC) paras 11, 18-21. Paras 22, 30. Para 24. Para 30; quoting R v Cambridge Health Authority (n 14 above) 137d-f. Para 29. Para 25. See also para 58. 112 Chapter 4 While it perhaps had good reason to exclude the rights to life and emergency treatment from application in this case – since the claim was for life-prolonging, rather than life-saving, treatment and since the appellant's chronic condition could not be said to constitute a medical emergency77 ‒ its unwillingness to interpret these rights as requiring the state to prioritise the provision of certain forms of medical treatment over others did betray a distinct discomfort with the ‘prioritising dimensions’ of socio-economic rights. This is unfortunate, as unwillingness to engage with the extent to which the text of the Constitution appears to mandate heightened concern for the protection of certain interests could significantly diminish the extent to which the rights in the Constitution may themselves substantively guide resource allocation and rationing processes.78 Disconcertingly, apart from acknowledging that the exclusion of the appellant from access to treatment was indicative of the inequality that the constitutional order aimed to eradicate79 and from a remark in a minority judgment that the notion of ‘resources’ had to be understood as encompassing also human and technological resources,80 the Court also declined to award any meaningful substantive content to the right of access to health care services, which was at the crux of the matter. Instead, it focused only on the manner in which enjoyment of this right was restricted by the lack of resources. As with the Cape High Court decision in Van Biljon, the Constitutional Court seemed to view resource constraints as inherently restricting the ambit of the right of access to care, rather than as placing limits on the enjoyment of the right, which would require constitutional justification.81 This failure to substantively interpret section 27(1)(a) of the Constitution meant that the Court did not test the challenged admissibility criteria, or the process by which they were applied in Mr Soobramoney's case, against substantive constitutional standards.82 Instead, it assessed the admissibility criteria for rationality and bona fides, by any account fairly timid standards of review, which focus far more on process than on substance. What is more, the Court appears to have assumed the rationality and bona fides of the criteria, simply because the appellant did not assert the contrary. Its limited scrutiny of the criteria was probably understandable, given the limited information before it and since the 77 78 79 80 81 82 Paras 21, 57 as well as commentary by, for instance, Moellendorf (n 37 above) 327328; M Pieterse ‘Enforcing the right not to be refused emergency medical treatment: Towards appropriate relief ’ (2007) 18 Stellenbosch Law Review 75 83. Pieterse (n 1 above) 527; Scott & Alston (n 37 above) 219, 244-245, 252; S Wilson & J Dugard ‘Constitutional jurisprudence: The first and second waves’ in M Langford et al (eds) Socio-economic rights in South Africa: Symbols or substance? (2014) 35 38. See also, more broadly, Parkin (n 10 above) 873-874; Syrett (n 15 above) 318-321. Soobramoney (n 71 above) paras 8, 31. Soobramoney (n 71 above) para 43. Bilchitz (n 50 above) 9. Liebenberg (n 36 above) 141. See also Sarkin (n 62 above) 101; Van Oosten (n 54 above) 17. Rights and resources: The limits of justiciability? 113 criteria were mostly based on clinical factors and were devised, in the interests of enhancing meaningful access to care, by individuals who were themselves powerless to alter the amount of resources available to satisfy the competing claims before them.83 But the almost non-existent burden of proof that the state had to satisfy in claiming that there were not sufficient resources to provide Mr Soobramoney with the treatment he requested, is problematic. This is because it provides almost no space for deliberation over the substantive issues at stake when resource scarcity demands the sacrifice of certain needs in favour of others.84 Furthermore, the Court's resort to the review standards of rationality and bona fides, which imply a level of functional deference typically associated with matters involving clinical medical decisions,85 in evaluating the constitutionality of these criteria may perhaps be accused of obscuring the non-clinical factors that impacted on the decision-making process and thus of failing to insist on sufficient accountability for everybody involved. More fundamentally, the Court's scrutiny was limited only to the parameters of the ‘tragic choice’ that had to be taken by staff at the particular hospital, whereas the constitutional compliance of the legion of political, budgetary, and administrative decisions that shaped the contours of this choice was either assumed or left unquestioned. By depicting the resource scarcity which necessitated the formulation of the admissibility criteria as a natural, rather than a political fact, the Court insulated these decisions from even the relatively timid level of scrutiny which it was willing to employ in the circumstances.86 The Court's conflation of the functional rationing decision with these preceding political rationing decisions betrays an overly narrow understanding of the concept ‘available resources’ in section 27(2) of the Constitution and allows for a simple assertion of scarcity to trump any rights-based challenge against rationing decisions.87 Further still, the Court's limited focus did not hinder it from referring, in the abstract, to the overall scarcity of resources in South Africa and to the many competing health-related and other claims for access to resources 83 84 85 86 87 See K Chetty ‘The public finance implications of recent socio-economic rights judgments’ (2002) 6 Law, Democracy & Development 231 249; P Lenta ‘Judicial deference and rights’ (2006) Tydskrif vir die Suid-Afrikaanse Reg 456 464-465; Liebenberg (n 36 above) 140-141, 195; JC Mubangizi ‘The constitutional right of access to health care services in South Africa: From renal dialysis to Nevirapine’ (2003) 24 Obiter 203 211-212. Syrett (n 4 above) 212. On the appropriateness of rationality as review standard for clinical medical decisions see, for instance, Hall (n 16 above) 715; Orentlicher (n 16 above) 51-52, 59, 61-62, 71; Parkin (n 10 above) 870, 877. See C Ngwena ‘Aids in Africa: Access to health care as a human right’ (2000) 15 SA Public Law 1 15; Sarkin (n 62 above) 101-102; J Sarkin ‘A review of health and human rights after five years of democracy in South Africa’ (2000) 19 Medicine & Law 287 293; Van Oosten (n 54 above) 17. Barberton (n 35 above) 7; Liebenberg (n 36 above) 192; Moellendorf (n 37 above) 331332; Scott & Alston (n 37 above) 239. 114 Chapter 4 that the state has to meet within limited budgets, in justifying its dismissal of the claim.88 Craig Scott and Philip Alston warn against invoking and endorsing such utilitarian justifications, arguing that such reasoning could lead to a situation where [t]he individual is quickly sacrificed to the amorphous general good on this kind of reasoning which, if taken all the way, would preclude virtually any adjudication of a claim to resources as enjoying constitutional priority over other claims.89 The above shortcomings notwithstanding, the Soobramoney decision can be credited for placing the hitherto exclusively political issue of healthresource distribution squarely within the public and legal domain and for significantly enhancing public deliberation around the issue.90 As Keith Syrett observed: Albeit extremely tentatively, [Soobramoney] may be viewed as establishing a framework within which scrutiny could be exercised on the basis of the justifications and evidential support proffered by the decision-maker, thereby clearing the path for the creation of a deliberative space within the courtroom, and a potential judicial role as a catalyst for broader public and political deliberation.91 The Constitutional Court’s next socio-economic rights decision, Government of the RSA v Grootboom,92 is today best known for being the case in which the Court first developed its ‘reasonableness’ approach to socioeconomic rights adjudication. Grootboom was a housing case, but the reasonableness approach developed there was soon to be applied to the right of access to health care services in Minister of Health v Treatment Action Campaign (No 2),93 in which the Court famously found that the state's policy of restricting the availability of the drug Nevirapine for purposes of preventing mother-to-child-transmission of HIV to a limited number of ‘research and training’ sites in the public health sector, was unconstitutional. In both cases, the Court continued to shy away from interpreting the socio-economic rights in the Constitution in a way that would require the state to prioritise the allocation of resources towards the satisfaction of any specific socio-economic need. In Grootboom, the Court refused to interpret the right of access to housing as encompassing a minimum core obligation 88 89 90 91 92 93 Soobramoney (n 71 above) paras 28, 31. Scott & Alston (n 37 above) 252-253. See also 241-244 as well as Liebenberg (n 36 above) 141. On public reflection sparked by the judgment, see M Pieterse ‘Health, social movements and rights-based litigation in South Africa’ (2008) 35 Journal of Law & Society 364 386 as well as the newspaper reports cited there. Syrett (n 4 above) 214. 2001 (1) SA 46 (CC). 2002 (5) SA 721 (CC). Rights and resources: The limits of justiciability? 115 upon the state to provide rudimentary shelter to those who lack it,94 and also declined to interpret section 28(1)(c) of the Constitution in a manner that would prioritise the housing interests of children over the socioeconomic needs of the rest of the population.95 Then, in Treatment Action Campaign, the Court emphatically rejected a minimum core interpretation of section 27(1)(a) read with section 27(2) of the Constitution – which, due to Nevirapine’s inclusion in the WHO’s list of ‘essential drugs’, would have required the public sector availability of the drug as a matter of immediate priority.96 These findings have been heavily criticised, not least for minimising the potential of socio-economic rights to guide resource allocation, appropriation and distribution policies and processes.97 It is clear, especially from Treatment Action Campaign, that the Court's hesitance to engage in prioritising interpretation is primarily due to a fear of overstepping institutional boundaries. In explaining its preference for its reasonableness approach to socio-economic rights adjudication – which, according to Grootboom, requires that policies aimed at the progressive realisation of socio-economic rights must be balanced, coherent, flexible, inclusive and transparent, must cater for emergency needs and may not neglect the needs of the most vulnerable members of society98 ‒ over the more interventionist minimum core approach, the Court indicated that it was not prepared to ‘make the wide-ranging factual and political enquiries necessary for determining what the minimum core standards … should be, nor for deciding how public revenues should more effectively be spent’.99 To instead evaluate policy measures for reasonableness, the Court held, was appropriate because ‘such determinations of reasonableness may in fact have budgetary implications, but are not themselves directed at rearranging budgets’.100 While the Court thus accepted that its socioeconomic rights judgments would often have budgetary consequences, it was not prepared to either prescribe the temporal order in which socioeconomic needs had to be met, or to directly determine that specific resources ought to have been allocated to a particular cause.101 94 95 96 97 Grootboom (n 92 above) paras 32-3. Paras 71-78. Treatment Action Campaign (n 93 above) paras 29, 35-9. For some of this criticism, see Bilchitz (n 37 above); D Brand ‘The proceduralisation of South African socio-economic rights jurisprudence, or “what are socio-economic rights for?”’ in H Botha et al (eds) Rights and democracy in a transformative constitution (2003) 33 36-37, 45-46, 49, 55; Liebenberg (n 29 above) 187; C Mbazira Litigating socioeconomic rights in South Africa: A choice between corrective and distributive justice (2009) 59; Pieterse (n 47 above) 484-488; T Roux ‘Understanding Grootboom ‒ A response to Cass R Sunstein’ (2002) 12 Constitutional Forum 41 at 46. 98 Grootboom (n 92 above) paras 42-46. 99 Treatment Action Campaign (n 93 above) para 37. See also Grootboom (n 92 above) para 41. 100 Treatment Action Campaign (n 93 above) para 38. 101 See Chetty (n 83 above) 236-238; Pieterse (n 4 above) 410; Roux (n 5 above) 97-98; Syrett (n 4 above) 219. The Court's institutional self-conception corresponds to the operation of the 'non-justiciability rule' in British public law, where discretionary 116 Chapter 4 But this does not mean that the Court's reasonableness approach is a toothless one that allows the state simply to toll the bell of limited resources in response to any claim that a socio-economic right had been infringed. For all its faults, reasonableness certainly appears to be a far more robust review standard than that applied in Soobramoney, perhaps signalling that the Court is more comfortable with interrogating the effects of widely applicable national policy (such as that under scrutiny in Grootboom), than with second-guessing more constrained, micro-level rationing decisions (such as that challenged in Soobramoney). While the reasonableness inquiry in Grootboom and Treatment Action Campaign steered clear of pronouncing on macro-economic issues and apparently operated on an understanding of ‘available resources’ that was limited to the national budget allocated to a specific sector,102 it nevertheless insisted on accountability for resource allocation and distribution. In order to be reasonable, the Court held, a policy or plan must clearly allocate responsibilities between different spheres of government and must ‘ensure that the appropriate financial and human resources are available’ for its effective implementation,103 perhaps signalling that policies will be found unreasonable where they are evidently under-resourced.104 In keeping with the notion of progressive realisation, the Court further held that reasonable policy had to balance short, medium and long-term needs and had to ensure that financial obstacles to the enjoyment of a right are lowered over time.105 In order to be reasonable, policies must further plan and budget for the fulfilment of emergency and urgent needs and need to ensure that they do not exclude the needs of vulnerable members of society.106 While the Court remained vague as to precisely how it would assess compliance with these obligations,107 they clearly pose substantive requirements in relation to the budgeting and costing of socio-economic policies and to expenditure in terms thereof.108 As to assertions of resource scarcity, the Treatment Action Campaign decision makes it clear that these will only be entertained where they have a clear factual basis. The Court rejected the government's claim that it lacked the capacity – in other words, the human and operational resources – to extend the availability of Nevirapine beyond research and training sites, as the evidence clearly showed that such capacity indeed existed at 101 resource allocation is regarded as non-justiciable but decisions which impact on resource distribution are permissible. See generally King (n 17 above) 197-199, 209218. 102 See Bilchitz (n 50 above) 10; Chetty (n 83 above) 236-238, 250. 103 Grootboom (n 92 above) para 39. 104 Ferreira (n 11 above) 278-279; Govindjee & Olivier (n 63 above) 176. 105 Grootboom (n 92 above) paras 43, 45. 106 Paras 43-44, 68. 107 Liebenberg (n 62 above) 255; Syrett (n 4 above) 226. 108 Bilchitz (n 50 above) 12; Chetty (n 83 above) 240-242; A Hassim ‘The cost of rights: Is there a legal right to transparent and efficient budgeting?’ in J Berger & M Heywood (eds) Section 27 Review April 2010 - December 2011 (2012) 45 49. Rights and resources: The limits of justiciability? 117 several sites.109 It also found that it was unnecessary to engage with arguments pertaining to budget constraints, as it became clear during the course of litigation that additional funds had been made available for the purpose of extending the PMTCT programme.110 At the crux of the Court's finding that the refusal to make Nevirapine available more broadly was unreasonable, was the fact that to do so was demonstrably within the resource capacity of the state.111 In non-health-related socio-economic rights cases decided subsequent to Treatment Action Campaign, the Constitutional Court has gradually become more assertive when faced with claims of resource scarcity in defence of non-fulfilment of positive obligations. In Khosa and Mahlaule v Minister of Social Development, the Court followed through on indications in Grootboom that it would not tolerate policies which endorse social exclusion even where remedying this would have significant budgetary implications,112 when finding that the ambit of specific social security legislation had to be extended to also make permanent residents eligible to receive certain benefits, notwithstanding that this would require a notable budget increase.113 The Court made this finding after careful consideration of the budgetary implications of its remedy.114 It held that, resource implications notwithstanding, criteria which limit eligibility for socioeconomic benefits may not be unfairly discriminatory and must be reasonable. It further introduced a substantive element to the reasonableness analysis in this respect, by determining that, in addition to the availability of resources, the reasonableness of a policy which restricts eligibility to social benefits must be assessed with reference to the prohibition on unfair discrimination, as well as to the impact of exclusions from eligibility on the enjoyment of other rights in the Bill of Rights, in particular the rights to life and dignity.115 In Rail Commuters Action Group v Transnet t/a Metrorail, which involved Transnet’s compliance with positive obligations flowing from the rights to life, dignity and freedom and security of the person, in relation to the physical safety of commuters on trains, the Constitutional Court found that ‘a bald assertion of resource constraints’ will not be sufficient to absolve an organ of state from its responsibilities in this regard, which had to be carried out ‘reasonably’. It rejected Transnet’s assertion that it lacked the resources to ensure adequate security on its passenger trains, holding that, where an organ of state attempts to justify non-compliance with a 109 Treatment Action Campaign (n 93 above) para 66 ‒ see also Ferreira (n 11 above) 280; Liebenberg (n 36 above) 156. 110 Treatment Action Campaign (n 93 above) paras 116-117, 120. 111 Ibid para 80 ‒ see also Black et al (n 40 above) 498; Govindjee & Olivier (n 63 above) 179. 112 Grootboom (n 92 above) paras 43-44; see Chetty (n 83 above) 241-242. 113 Khosa v Minister of Social Development; Mahlaule v Minister of Social Development 2004 (6) SA 505 (CC) para 62. 114 Para 62. See Govindjee & Olivier (n 63 above) 180; Liebenberg (n 36 above) 193. 115 Khosa (n 113 above) paras 44-45, 67. See Bilchitz (n 50 above) 10. 118 Chapter 4 constitutional obligation for reasons of resource scarcity, it must provide the Court with details of the precise character of the constraints, within the context of the overall resources available to it.116 The Constitutional Court then indirectly upheld the negative obligation inherent to the right to have access to health care services in Law Society of South Africa v Minister of Transport. It found that amendments to the Road Accident Fund Act 56 of 1996, according to which reduced medical care tariffs would be paid to survivors of motor accidents with the effect that they would only be able to afford public sector health care, violated section 27(1) of the Constitution in relation to paraplegic and quadriplegic patients, who required specialised care of a quality that was available only in the private health care sector.117 Having previously indicated in a non-health-related context that it would insist on full justification in terms of the limitation clause for breaches of the negative obligations imposed by socio-economic rights,118 the Court found that the reduction in quality of care brought about by the reduced tariff, which would have potentially life-threatening consequences for quadriplegic and paraplegic patients, could not be justified by the altogether negligible financial saving that it brought about for the Fund.119 Finally, in City of Johannesburg Metropolitan Municipality v Blue Moonlight Properties, the Constitutional Court forcefully indicated that the ambit of its reasonableness analysis extended also to budgetary decisions and processes.120 The Court rejected the City of Johannesburg’s assertion that it could not be held responsible for providing emergency housing to persons evicted from private property because it did not budget for this and thus had no resources available, and because the Gauteng Provincial government would not make additional resources available to it in order to do this. The Court stated that its determination of reasonableness ‘cannot be restricted by budgetary and other decisions that may well have resulted from a mistaken understanding of constitutional or statutory obligations’, and clarified that this meant that ‘it is not good enough for the City to state that it has not budgeted for something, if it should indeed have planned and budgeted for it in the fulfillment of its obligations’.121 The Court further referred to and upheld the earlier rejection of the City's assertion of 116 Rail Commuters Action Group v Transnet Ltd t/a Metrorail 2005 (2) SA 359 (CC) para 88. See Ferreira (n 11 above) 281; Hassim (n 108 above) 49; Liebenberg (n 36 above) 197. 117 Law Society of South Africa v Minister of Transport 2001 (1) SA 400 (CC) paras 91-99. 118 Jaftha v Schoeman; Van Rooyen v Stoltz 2005 (2) SA 140 (CC) ‒ for critical discussion see Liebenberg (n 46 above) 41-44. 119 Law Society (n 117 above) para 98. 120 Ferreira (n 11 above) 295. 121 City of Johannesburg Metropolitan Municipality v Blue Moonlight Properties 39 (Pty) Ltd 2012 (2) SA 104 (CC) para 74. See also paras 68-69. For discussion, see Hassim (n 108 above) 49 and, in relation to the SCA’s earlier and similar decision on the case, H Kruuse ‘“The art of the possible” in realising socio-economic rights: The SCA decision in City of Johannesburg Metropolitan Municipality v Blue Moonlight Properties 39 (Pty) Ltd'’ (2011) 128 South African Law Journal 620-632. Rights and resources: The limits of justiciability? 119 resource scarcity by the Supreme Court of Appeal (SCA) in this matter, where the SCA noted that the City had, in fact, operated at a budget surplus.122 The Court accordingly found that the City did have to provide emergency housing to the persons in question. It would thus appear that the Constitutional Court is interrogating the manner in which the state manages its resources in the pursuit of fulfilment of socio-economic rights with increasing boldness, as it becomes more comfortable with its institutional role in socio-economic rights matters. While clearly respecting the reality of resource scarcity and showing significant deference to the political branches’ allocation and distribution of resources, the Court is not afraid to insist on convincing factual evidence of scarcity and to reject assertions of scarcity where such evidence is not forthcoming or where resources are clearly available – such as when budgets have been underspent.123 Its recent jurisprudence begins to suggest that budgetary allocations, processes and policies may, in appropriate circumstances, themselves be assessed for reasonableness.124 The jurisprudence further indicates that, while the Court remains sensitive to the budgetary and related consequences of the remedies that it orders in socio-economic rights cases, it will not shy away from making orders with significant budgetary consequences in circumstances where this is warranted by the gravity of the constitutional violation that it aims to correct.125 It may therefore be concluded that the Court is indeed becoming an important forum for public deliberation over the manner in which resources are appropriated in pursuit of the progressive realisation of socio-economic rights.126 4.5 Rights and contemporary health financing policy debates Having established that the judicial vindication of constitutionally entrenched socio-economic rights does hold potentially significant consequences for health-financing policies and processes, it is interesting to consider the extent to which current health-financing debates are impacted thereby. It is generally accepted that the skewed distribution and inefficient use of resources in the South African health system is largely to blame for the fact that the country's health outcomes are poor, notwithstanding the fact 122 Blue Moonlight (n 121 above) paras 71, 75, 96. See Kruuse (n 121 above) 628. 123 Hassim (n 108 above) 49; Kruuse (n 121 above) 621, 624, 632, Liebenberg (n 36 above) 193-194, 197. 124 See Ferreira (n 11 above) 299-301. 125 Bollyky (n 29 above) 164-165, 175; Govindjee & Olivier (n 63 above) 181-182; Liebenberg (n 36 above) 195, 197-198. 126 See also Syrett (n 4 above) 221-223. 120 Chapter 4 that it spends in excess of 8 per cent of GDP on health.127 Access to health care in South Africa is funded primarily through the national health budget, private contributions from medical schemes and patients themselves as well as donor or non-profit financing.128 But approximately half of all resources spent on health are spent in the private-health sector, which serves only a fraction of patients. The private-health sector further employs the majority of health care professionals, and contains a disproportionate share of relevant technological resources.129 The South African private-health sector is an extremely wasteful one, with severe over-servicing and unnecessary treatments with questionable health outcomes being the order of the day.130 The cost of care in the private sector is further exorbitant, meaning that increasingly fewer patients can afford either medical insurance or out of pocket payments. This relegates an increasing amount of patients to the public-health sector, causing increased strain on the national health budget. The resulting discrepancies in access to and quality of health care services in the private and public sectors are legendary.131 In the public sector meanwhile, resources are frequently misappropriated through corruption and budgetary and financial mismanagement. Reports on health crises across provinces detail lack of financial and budgetary management, bureaucratic inefficiency, nonpayment of staff salaries or medicine suppliers, tender irregularities, poor maintenance of health facilities and equipment and various instances of over and underspending, both by provincial departments of health and at individual health care institutions.132 127 See Gaigher (n 53 above) 47; A Hassim et al Health & democracy (2007) 85; N Majoe ‘Health and welfare’ in J Kane-Berman (ed) South Africa Survey 2009-2010 (2010) 467 505; McIntyre et al (n 3 above) 233; South Africa National Department of Health National Health Insurance in South Africa Policy Paper (hereinafter 'NDH Policy Paper') (2011) 9. 128 Hassim et al (n 127 above) 85. For a detailed explanation of the budgetary process in relation to health, see McIntyre et al (n 3 above) 447-453. For recent figures on budget allocations and medical aid coverage, see further Majoe (n 127 above) 504, 508-509. 129 See S Benatar ‘The challenges of health disparities in South Africa’ (2013) 103 South African Medical Journal 154; HCJ van Rensburg et al ‘Human resources for health and the health professions in South Africa’ in Van Rensburg (ed) (n 3 above) 361 414-416. 130 See McIntyre et al (n 3 above) 458, 461. 131 NDH Policy Paper (n 127 above) 4-5, 9-11; Hassim (n 108 above) 51-52; HCJ van Rensburg & MC Engelbrecht ‘Transformation of the South African health system: Post-1994’ in Van Rensburg (ed) (n 3 above) 121 177-178. 132 See Eastern Cape Health Crisis Action Committee Memorandum to MEC Sicelo Gqobana: About the crisis in Eastern Cape health (September 2013) 2-5 available at http:// www.echealthcrisis.org (accessed 6 May 2014); Section 27 & Treatment Action Campaign Monitoring our health: An analysis of the breakdown of health care services in selected Gauteng facilities (2013) at 16-29; South African Human Rights Commission Report in the matter between Democratic Alliance, Mpumalanga and the Department of Health, Mpumalanga File Ref MP/1213/1060 (December 2013) 31-33, 38-39. See further Ferreira (n 11 above) 275, 296; Hassim (n 128 above) 50-51; McIntyre et al (n 3 above) 455-456; Ruff et al (n 3 above) S190. Rights and resources: The limits of justiciability? 121 Commentators and human-rights organisations are increasingly challenging these instances of financial and budgetary mismanagement with reference to standards laid down in constitutional health-rights jurisprudence. For example, when the Free State Province’s health budget ran short in late 2008, with the result that the provincial government placed a moratorium on the enrolment of new patients on anti-retroviral treatment, human-rights organisations indicated that they would be prepared to litigate against the Department of Health if it did not urgently make sufficient funds available to enable the lifting of the moratorium. They argued that the lack of funds and resulting moratorium meant that the implementation of government's anti-retroviral treatment programme was falling short of the constitutional requirement of reasonableness. The state responded by making additional funds available for anti-retroviral treatment in the Free State, in early 2009.133 More recently, Section 27 – a human rights advocacy and litigation organisation focusing on the progressive realisation of socio-economic rights – has responded to persistent reports of staff shortages and lack of essential medicines and supplies in Gauteng public hospitals, by calling on the Department of Health to adjust its budgeting principles and processes in accordance with the health needs of patients in the province and the Department's corresponding constitutional obligations.134 Another recent example relates to the implementation of the South African National Strategic Plan for HIV 2007-2011. Adila Hassim of Section 27 has argued that the Plan fell short of the substantive requirements posed by the socio-economic rights jurisprudence, in that it was inadequately costed and budgeted for, with the result that its full implementation was not possible.135 Hassim accordingly urged for proper costing and budgeting of the next strategic plan, which would otherwise ‘fail a vital legal test’136 and could be vulnerable to constitutional attack. Clearly, the constitutional jurisprudence has provided civil society with powerful tools to hold government accountable for its obligations in the health sector, particularly in relation to the availability of resources in the public health system. But the constitutional right of access to health care services also clearly requires state intervention in the misdistribution of overall health resources between the public and private sectors, as well as in relation to the burgeoning costs of private sector care.137 In this regard, the government's proposed National Health Insurance system presents, in the medium term, the most significant resource-related policy process in the health field. Aiming to ensure universal access to a 133 See Aids Law Project Report on antiretroviral treatment in the Free State: November 2008 February 2009 (2009). 134 Section 27 Comment on the Gauteng health crisis Press Statement, 14 August 2012. 135 Hassim (n 108 above) 45-48. 136 Hassim (n 108 above) 53. 137 Hassim (n 108 above) 51-52. 122 Chapter 4 basic package of health care services in the public health system and, thereby, to further principles of social solidarity, effectiveness and appropriateness of care, equity, affordability and efficiency,138 this taxfunded scheme will likely remove state-subsidisation of private-health insurance.139 The government regards the proposed system as affordable, but only on the understanding that ‘the present system of fragmentation, associated with the high cost, curative and hospi-centric approach and excessive and unjustifiable charges, especially within the private health sector is unsustainable’.140 Moreover, while the relevant policy documents do not explicitly state this, it appears that some level of health service rationing will be central to the proposed system's implementation. The extent, if any, to which the Constitution constrains the extent to which this major policy development may disrupt the vested interests of private sector institutions is discussed in chapter 5 below. What is important to highlight here is that National Health Insurance will ultimately be judged as to whether it succeeds in making quality health care services progressively accessible to all South Africans, within the legal parameters set by the Constitutional Court's health rights jurisprudence, and particularly by the ‘reasonableness test’. It is clear from the aforegoing discussion that, in order to pass constitutional muster, the introduction of National Health Insurance must be thoroughly costed and sufficiently budgeted for.141 Moreover, any rationing inherent to the system must be rational, bona fide, based upon medically justifiable criteria and may not have an adverse or exclusionary impact on particular groups of persons. The jurisprudence further requires that the policy will have to cater for a range of health-related needs without excluding the needs of vulnerable persons and that its implementation may not have the consequence of unjustifiably abandoning particular categories of treatment or of unjustifiably depriving people of necessary care to which they would have had access under the previous health financing dispensation. It is clear that patients who are denied treatment under a new health financing system could challenge the constitutionality of the denial, which would pass muster only if the policy framework in terms of which it takes place is reasonable – and, in certain instances, justifiable – and where the 138 NDH Policy Paper (n 127 above) 16-18, 24. On the significance of these principles for health financing in South Africa, see R Amollo ‘In pursuit of health equity in South Africa; A critique of the proposed national health insurance’ (2009) 10 ESR Review 14 14-16; Van Rensburg & Engelbrecht (n 131 above) 134. 139 While not purporting to outlaw private medical insurance, the NDH Policy Paper aims to enable sufficient access to public sector care so that ‘South Africans have a real choice as to whether to continue medical scheme membership or simply draw on their National Health Insurance entitlements’. NDH Policy Paper (n 127 above) 40. 140 As above. 141 On the current NHI costing process and steps towards increasing resources for NHI, see MP Matsoso & R Fryatt ‘National Health Insurance: The first 18 months’ (2012/ 13) South African Health Review 21 27-30. For further resource-related assessment of the proposed NHI, see Benatar (n 129 above) 155; Ruff et al (n 3 above) S185, S188. Rights and resources: The limits of justiciability? 123 particular application of the policy to the individual case is, at the very least, rational, bona fide and non-arbitrary. While courts will be loathe to interfere with individual decisions on the appropriation of limited health care resources between needy patients, blanket assertions of resource scarcity alone will arguably be insufficient to justify a denial of care to groups of patients. 4.6 Conclusion Health law cannot finesse or do away with disagreements that neither our society nor our politics have been able to resolve. However, when disputes between parties arise, health law can and should make underlying empirical and normative questions explicit. And, when courts must answer these questions, they should do so candidly. Doing so would clear a path toward substantive coherence and predictability, both within and across doctrinal settings. It would enable actors in the health sphere to draw consistent messages from the law, to conform their conduct accordingly, and to question these messages cogently in both the legal and political arenas. It would empower the public and enrich the democratic process by making health law’s choices more visible.142 This chapter has reflected on the impact of justiciable health-related rights on the manner in which South African courts engage with health-related financing and rationing issues, decisions and processes. It has shown that the constitutional presence of health-related rights has placed the justiciability of disputes pertaining to the distribution of health related resources beyond dispute. The Constitution therefore requires of the South African judiciary to transcend, first, their hesitance to scrutinise the conception and implementation of policies with budgetary and financial dimensions and, secondly, their reliance on the discourse of ‘inevitable tragedy’ that often obscures the political character of resource distribution and rationing decisions. A rights-based approach to health clearly enhances public accountability for, public participation in and transparency of healthrelated resource distribution decisions and processes.143 It demystifies resource distribution processes and decisions, demands that government takes its socio-economic responsibilities seriously144 and requires that it justifies decisions and policies that have the effect of hindering individual access to care. Moreover, rights fulfil an important directive function, in that they indicate the range of interests that need to be taken into account when health-related finances are allocated, distributed, and applied. In this regard, South African courts appear to be well placed to participate in the establishment and elaboration of substantive principles to which resource 142 Bloche (n 20 above) 301-302. 143 Daniels (n 13 above) 328. 144 Barbeton (n 35 above) 8; Liebenberg (n 36 above) 197. 124 Chapter 4 distribution and rationing processes must adhere and to devise appropriate standards of scrutiny that measure compliance with such principles. In assessing the courts’ jurisprudence in this regard, the chapter showed that, despite a somewhat lamentable caution on the part of the Constitutional Court to award substantive content to health-related constitutional rights – which minimises the substantive guidance that its jurisprudence provides to policy makers – the Court is becoming increasingly bold in insisting that the state provides adequate justification where health-related rights go unrealised due to a lack of resources. It is clear that, in South Africa, mere assertions of resource scarcity are not sufficient to absolve the state of responsibility for the realisation of healthrelated rights. Furthermore, the Constitutional Court's jurisprudence, and particularly its reasonableness approach, is increasingly providing yardsticks by which the human-rights sector is measuring state compliance with the financial dimensions of socio-economic rights. But, perhaps most significantly, the constitutional inclusion of healthrelated rights has elevated the level of public deliberation over resource distribution in the health sector. In particular, courts have become fora where resource distribution and rationing decisions are openly deliberated and weighed against the foundational principles of the constitutional order. As public dissatisfaction with increased reports of misspent public resources mounts,145 we may expect judicial engagement with the resource-related dimensions of the progressive realisation of socioeconomic rights to increase. 145 See Ferreira (n 11 above) 275, 296-298, who argues that these reports provide increased impetus for judicial scrutiny of financial processes and, in particular, of government assertions of resource scarcity as defense against socio-economic rights claims. CHAPTER 5 RIGHTS, HORIZONTALITY AND REGULATION: FACING THE PUBLIC/PRIVATE DIVIDE 5.1 Introduction The hard and unpalatable fact is that if the appellant were a wealthy man he would be able to procure such treatment from private sources; he is not and has to look to the State to provide him with the treatment. But the State's resources are limited and the appellant does not meet the criteria for admission …1 To say that the current state of the South African health system reflects severe inequalities in the extent and quality of access to health care services would be an understatement. The combined legacy of the structured racial oppression of apartheid and a laissez faire government approach to the development and operation of the private health sector2 has led to a situation where a small minority of (wealthy or employed, insured and predominantly white) citizens access private health care services of first world quality, whereas the majority of the (mostly poor and black) population are subjected to an over-burdened, under-staffed, underequipped and under-resourced public health system.3 In a society where the Constitution not only guarantees a package of rights corresponding to the right to health in international law, but also 1 2 3 Soobramoney v Minister of Health (KwaZulu-Natal) 1998 (1) SA 765 (CC) para 31. On the privatisation of health care in South Africa and its interplay with apartheid and post-apartheid race politics, see HCJ van Rensburg ‘A history of health and health care in South Africa: 1652-1994’ in HCJ van Rensburg (ed) Health and health care in South Africa (2ed 2012) 61 100-112. The bulk of South African health-care expenditure takes place in the private-health sector, which serves less than one fifth of the population. For discussion of these figures and related problems, see A Hassim et al Health & democracy (2007) 17, 25-26, 164-66; B Ruff et al ‘Reflections on health-care reforms in South Africa’ (2011) 32 Journal of Public Health Policy S184-S192, as well as discussions in ch 1 at 1.2 and ch 4 at 4.5. On the unequal provision of health services under apartheid, see further C Ngwena ‘The historical development of the South African health-care system: From privilege to egalitarianism’ (2004) 37 De Jure 290 299-301; South African Human Rights Commission Report Public inquiry: Access to health care services (2008) 12-14. 125 126 Chapter 5 espouses a substantive notion of equality, these discrepancies in access to health care services are simply untenable. Yet they remain, and are sustained and reinforced by the operation of the health care market. While the private sector continues to be enabled by the public health system – which, for instance, retains responsibility for the training of all health care professionals – it continues to increase the pressure on the public system, by drawing the majority of health care workers, as well as the majority of well-resourced patients, away from it.4 Meanwhile, partly because the South African private health care market has been left virtually unregulated, costs of care within the private sector continue to soar,5 further limiting access thereto and increasing the burden on the public sector. Clearly, the Constitution requires fundamental reform of the structure of the health system, in order to ensure that the system enables equitable access to health care services, on the basis of need rather than of ability to pay.6 Unsurprisingly therefore, such reform has from the outset been a policy priority of the democratic government. One of the central goals held forth in the 1997 White Paper on the Transformation of the Health System of South Africa was the reduction of discrepancies and inequities in health care service delivery, through the integration of the private and public health sectors into a unitary system that delivers equitable access to quality health care.7 The subsequently enacted National Health Act 61 of 2003 clearly reflects this commitment. Section 2(a) of the Act determines that its objectives include ‘establishing a national health system which encompasses public and private providers of health services; and provides in an equitable manner the population of the Republic with the best possible health services that resources can afford’. Several other provisions 4 5 6 7 See Hassim et al (n 3 above) 168-169; M Heywood ‘Debunking “Conglomo-talk”: A case study of the amicus curiae as an instrument for advocacy, investigation and mobilisation’ (2001) 5 Law, Democracy & Development 133 136-137; HCJ van Rensburg & MC Engelbrecht ‘Transformation of the South African health system: Post-1994’ in Van Rensburg (ed) (n 2 above) 121 179. Canadian health care experts resist the creation of a dual health system precisely because of the tendency of better resourced private systems to lure away human and financial resources from public systems. See, for instance, the minority judgment in Chaoulli v Attorney General, Quebec 254 DLR (4th) 577 (2005) para 274 as well as M Jackman ‘“The last line of defense for [which?] citizens”: Accountability, equality and the right to health in Chaoulli’ (2006) 44 Osgoode Hall Law Journal 349 359, 362, 364; A Petter ‘Wealthcare: The politics of the Charter revisited’ in CM Flood et al (eds) Access to care, access to justice: The legal debate over private health insurance in Canada (2005) 116 116-117. For figures of private health sector growth and inflation post-1994, see Van Rensburg & Engelbrecht (n 4 above) 177-178. Hassim et al (n 3 above) 165, 170-172; Heywood (n 4 above) 137; Ngwena (n 3 above) 292; S Liebenberg Socio-economic rights: Adjudication under a transformative constitution (2010) 145. See White Paper on the Transformation of the Health System of South Africa (1997) 1.1.1, 1.1.2(a), 2.4, 3.10.4-3.10.5. Rights, horizontality and regulation: Facing the public/private divide 127 of the Act and many regulations envisaged thereby are geared towards the achievement of this goal.8 These policy commitments and statutory reforms notwithstanding, the private health care sector essentially remains largely unregulated today and the inequalities alluded to above have intensified over the last two decades.9 As a result, the need to overcome the public/private sector divide is, predictably, the main driver behind the current National Health Insurance policy process, with the Department of Health's Policy Paper on the issue describing the divide as being 'neither rational nor fair' and committing itself to a 'complete overhaul' of the health system in order to eventually ensure universal and equitable, needs-based access to quality care.10 In international law, it is generally understood that the obligation to protect the right to health requires of states to regulate domestic health service delivery in a manner that enables equitable access to health care services and ensures the availability, accessibility, acceptability and quality of health care. In states where health care service delivery is wholly or partly privatised, this may require close regulation of private sector activities.11 In line with growing acceptance that the activities of private entities engaged in essential service delivery have a significant impact on the enjoyment of socio-economic rights such as the right to health, international law further recommends that states elaborate the content of 8 9 10 11 See, for example, secs: 5 (obliging private establishments to provide emergency medical care); 36-40 (requiring certificates of need to ensure equitable geographical distribution of health services); 45(1) (enjoining the Minister to ‘prescribe mechanisms to enable a co-ordinated relationship between private and public health establishments in the delivery of health services’); 46 (requiring that private health establishments maintain insurance cover); 47 (aimed at ensuring adherence to quality standards in the public and private sectors); 90(1)(f), (m), (u), (v) (empowering the Minister to make regulations pertaining to co-operation between private and public health service providers, emergency medical treatment, processes and procedures pertaining to health care pricing in order to enhance access to care and price control respectively). For discussion of these and related provisions of the Act in this context, see van Rensburg & Engelbrecht (n 4 above) 179-180. Van Rensburg & Engelbrecht (n 4 above) 179. South Africa National Department of Health National Health Insurance in South Africa Policy Paper (hereinafter ‘NDH Policy Paper’) (2011) 5. See also 4, 6, 9, 16-18. For discussion of the manner in which the proposed NHI scheme intends to accomplish the narrowing of the private/public divide, see Van Rensburg & Engelbrecht (n 4 above) 180; DE McIntyre et al ‘Health care financing and expenditure: Post-1994 progress and remaining challenges’ in Van Rensburg (ed) (n 2 above) 433 478. UNCESCR General Comment 14 The Right to the Highest Attainable Standard of Health (Art 12 of the Covenant) (2000) para 35. See further UN Human Rights Council Business and Human Rights: Mapping International Standards of Responsibility and Accountability for Corporate Acts Report of the Special Representative of the Secretary General on the Issue of Human Rights and Transnational Corporations and Other Business Enterprises A/HRC/4/035 (2007) paras 10, 16. See further YA Vawda & BK Baker ‘Achieving social justice in the human rights/intellectual property debate: Realising the goal of access to medicines’ (2013) 13 African Human Rights Law Journal 55 62. 128 Chapter 5 private socio-economic obligations and facilitate compliance therewith, when regulating health care markets.12 This suggests that the state’s obligations in relation to the progressive realisation of the right to health also has implications for a wide range of individuals and corporations that are, in some way or another, present in the private health system. These include the various corporate players – such as private hospital companies and medical aid schemes – that comprise the system, the health care professionals employed there and the patients who make use of it. In considering these implications, this chapter shows that rights are not advanced solely by being invoked against the state, but also that the state can ‒ and, indeed, must – sometimes invoke them against private entities in attempting to ensure their broader enjoyment.13 Yet, the obligation to progressively realise health-related rights rests primarily upon the state, and the state’s infringement of private rights and interests in pursuit of this obligation will usually be capable of justification only in limited circumstances. The question of addressing the discrepancies in access to care between the public and private health sectors will thus often require a balance of seemingly competing rights. More often than not, this balance will be articulated as being one between the professional interests of health care professionals, as well as the interests of upper and middle class (and insured) patients to access particular health care services, on the one hand, and those of poor, public sector patients for greater access to the same quality of health care services on the other. Given the significant financial interests at stake in the business of private health care service delivery, as well as the fact that the implicated private parties tend to be well resourced and thus to have relatively unencumbered access to courts, it can be expected that courts will often be called upon to strike this balance. Indeed, private health system reform tends to be litigious terrain all around the world. This chapter considers the different ways in which constitutional norms and human rights, especially the right of access to health care services, impact on regulatory efforts at reforming the operation of the private health system in South Africa. It will show that rights and associated constitutional principles provide both the impetus and a blueprint for regulation, but that they simultaneously restrict regulatory possibilities. In particular, the chapter will focus on the extent to which 12 13 UNCESCR General Comment 14 (n 11 above) paras 35, 42. See further Liebenberg (n 6 above) 60, 329, 332; A McBeth ‘Privatising human rights: What happens to the state's human rights duties when services are privatised?’ (2004) 5 Melbourne Journal of International Law 133 137, 153-154; M Pieterse ‘Beyond the welfare state: Globalisation of neo-liberal culture and the constitutional protection of social and economic rights in South Africa’ (2003) 14 Stellenbosch Law Review 3 26; Vawda & Brook (n 11 above) 63. See N Daniels Just health care (1985) 114-115. Rights, horizontality and regulation: Facing the public/private divide 129 reforms, such as the mooted National Health Insurance system, must respect existing rights of health care professionals relating to the practice of their profession, as well as the rights of patients to the continued availability and accessibility of quality care. Over and above the limitation of private interests in the pursuit of an equitable health system, the chapter will further pay some attention to the question of the elaboration and enforcement of private obligations under health-related constitutional rights. 5.2 Rights as impetus for private health sector regulation The state's obligation to protect the rights in the Bill of Rights, in terms of section 7(2) of the Constitution, must be understood, in line with international law, to require that citizens’ right of access to health care services be protected against infringement in the course of private health care service delivery.14 Moreover, the obligation to fulfil the right of access to health care services clearly requires health system regulation aimed at facilitating equitable access to quality care. Specifically, in terms of section 27(2) of the Constitution, the state must adopt ‘reasonable legislative and other measures, within its available resources, to achieve the progressive realisation’ of the right of everyone to have access to health care services. Moreover, section 9(2) of the Constitution indicates that the right to equality must be understood as mandating ‘full and equal enjoyment of all rights and freedoms’, including the right of access to health care services, and as allowing – if not requiring – legislative and other measures aimed at achieving this goal. Health system reform and accompanying regulation aimed at ensuring equal access to health care services are therefore pressing constitutional obligations of the South African state.15 The regulation of the private health care sector in accordance with these constitutional obligations presents the primary space for the elaboration and enforcement of a network of private (‘horizontal’) socioeconomic obligations, in line with sections 8(2)-(3) of the Constitution, which determine that rights are, in appropriate circumstances, binding on private entities and that compliance with private constitutional obligations should be facilitated primarily through legislation and secondarily through 14 15 DM Chirwa ‘The right to health in international law: Its implications for the obligations of state and non-state actors in ensuring access to essential medicine’ (2003) 19 South African Journal on Human Rights 541 559; Liebenberg (n 4 above) 332333; S Liebenberg ‘The application of socio-economic rights to private law’ (2008) Tydskrif vir die Suid-Afrikaanse Reg 464 471. Heywood (n 4 above) 137; Pieterse (n 12 above) 26; M Pieterse ‘The legitimizing/ insulating effect of socio-economic rights’ (2007) 22 Canadian Journal of Law & Society 1 6-7. 130 Chapter 5 the application and development of the common law.16 This accords with the growing realisation that it is necessary for powerful private entities in the health care sector to be held accountable for the often significant consequences of their actions for people's enjoyment of the right to have access to health care services.17 Both through the imposition of private socio-economic obligations and otherwise, measures aimed at facilitating equitable access to health care services across the public/private health sector divide may have a significant impact on private rights, legitimate expectations and interests. It is therefore unsurprising that such measures are often the subjects of rights-based attack. However, the fact that the state is constitutionally obliged to adopt them, lends such measures a significant degree of legitimacy and insulation from rights-based attack, notwithstanding their impact. While a regulatory measure that limits any right in the Bill of Rights will withstand constitutional scrutiny only if it satisfies the standards of legality, reasonableness, justifiability and proportionality contained in the general limitation clause in section 36 of the Constitution (as will be elaborated below), the fact that a measure purports to comply with a constitutional obligation does weigh heavily in the balancing exercise inherent to the limitation inquiry. As such, the constitutional entrenchment of the right to have access to health care services provides a powerful counterweight to the hegemony of neo-liberal arguments against market intervention and significantly assists in countering the potential of civil and political rights challenges to thwart state attempts at social transformation.18 This is largely borne out by the outcome of litigation in this field. Following from Minister of Public Works v Kyalami Ridge Environmental Association, where the Constitutional Court held, in a different context, that the state's constitutional obligations in terms of socio-economic rights will sometimes outweigh competing private interests and thereby justify certain 16 17 18 See D Bilchitz ‘Corporate law and the Constitution: Towards binding human rights responsibilities for corporations’ (2008) 125 South African Law Journal 754 769-770; Chirwa (n 14 above) 562-563; Liebenberg (n 14 above) 469, 471; Pieterse (n 15 above) 18. See further 5.4 below. See DM Chirwa ‘Non-state actors’ responsibility for socio-economic rights: The nature of their obligations under the South African Constitution’ (2002) 3 ESR Review 2 6; S Ellmann ‘A constitutional confluence: American “state action” law and the application of South Africa's socio-economic rights guarantees to private actors’ in P Andrews & S Ellmann (eds) The post-apartheid constitutions: Perspectives on South Africa's basic law (2001) 444 449, 468; Liebenberg (n 14 above) 465-466; Liebenberg (n 6 above) 61; 331; Vawda & Brooks (n 11 above) 63. I have argued this in greater detail in Pieterse (n 15 above) 2-4, 8-9, 18-20. See also C Heyns ‘Extended medical training and the Constitution: Balancing civil and political rights and socio-economic rights’ (1997) 30 De Jure 1 5, 14-17 (arguing that the constitutional obligation to ensure access to health care services outweighs health care professionals’ freedom of movement and economic activity rights in the context of limited community service); Pieterse (n 12 above) 26. Rights, horizontality and regulation: Facing the public/private divide 131 limitations on individual rights,19 a number of prominent judgments pertaining to regulation of the health sector have similarly emphasised the significance of the state's constitutional obligation to make health care services equitably accessible. In Affordable Medicines Trust v Minister of Health,20 where the Constitutional Court dismissed the majority of challenges against a regulatory scheme that introduced limited restrictions on the ability of health care professionals to dispense medicines, the Court emphasised that all the parties to the matter accepted the constitutional legitimacy of the purpose of the measures – which was to ensure good dispensing and compounding practices in line with the obligation to provide access to safe and effective medicines.21 Similarly, in Minister of Health v New Clicks South Africa (Pty) Ltd,22 in which the Constitutional Court declared certain features of regulations aimed at controlling medicine retail prices unconstitutional, it was at pains to emphasise that the state's constitutional obligation to make medicines affordable was a compelling one, which would ordinarily serve to justify the limits placed by price control measures on the economic activity rights of pharmacies.23 While both these judgments found that certain features of the challenged regulatory schemes were unconstitutional (as will be discussed in more detail below), they both regarded the constitutional purpose of the schemes in question to be significant, to the extent that such measures would not ordinarily be unconstitutional merely because of the fact that they limit the commercial interests of private health care practitioners or institutions. An even better example of the legitimising and insulating effect of the right of access to health care services in this context, was the legal battle between the Pharmaceutical Manufacturers Association (PMA) and the South African government, pertaining to certain provisions of the Medicines and Related Substances Control Amendment Act 90 of 1997 which allowed, inter alia, for the parallel importation and generic substitution of certain patented medicines, as well as for the limited exhaustion of patents on medicines. The PMA claimed that the provisions infringed the rights of its members to intellectual property under section 25 of the Constitution – read with the provisions of the WTO's TRIPS agreement, which extends strong patent protection to pharmaceutical 19 20 21 22 23 2001 (3) SA 1151 (CC) paras 37-39, 51, 68, 103, 107. For discussion in this context, see Pieterse (n 15 above) 9-10. 2006 (3) SA 247 (CC). Paras 17-23, 54. See also Reitzer Pharmaceuticals v Registrar of Medicines 1998 (4) SA 660 (T) 684B-E, 691I-692A, where the High Court similarly emphasised the constitutional legitimacy of measures pertaining to the registration of medicines, in dismissing a challenge against the measures based on the right of a pharmaceutical company to economic activity. 2006 (2) SA 311 (CC). Paras 14, 16, 18 (per the entire Court); 314 (per Chaskalson CJ); 514, 517, 519 (per Ngcobo J); 673, 706-707, 710, 734 (per Moseneke J). For further discussion in this context, see Pieterse (n 15 above) 13-14. 132 Chapter 5 manufacturers24 ‒ as well as their rights to freedom of trade, occupation and profession. In response, the government emphasised its constitutional obligation to increase access to essential medicines by making them more affordable. The Treatment Action Campaign (TAC) joined the litigation as amicus curiae, leading evidence which showed that upholding the PMA’s arguments would significantly impede the progressive realisation of the right of access to health care services and accordingly arguing that the Court should uphold the limitation on the PMA’s rights. The TAC also mobilised outside the courtroom, drawing significant attention to the matter in the local and international press. The PMA proceeded unconditionally to withdraw its claims, and the matter was accordingly halted. Medicine prices dropped significantly in the wake of the litigation.25 It is therefore clear that the right of access to health care services not only requires the state to adopt measures aimed at its progressive realisation, but also lends such measures a significant degree of political and legal clout. Moreover, where measures are challenged for infringing on the rights of players in the private health care industry, the rights clothe their purpose in constitutional legitimacy, thereby going a long way towards justifying such infringements. Nevertheless, the rights of private sector entities, as well as the right of access to care itself, present significant boundaries for private sector regulation, as will now be illustrated. 5.3 Rights as parameters for private health sector regulation At a risk of stating the obvious, a regulatory scheme is not constitutionally compliant simply because it aims to give effect to a constitutional obligation. On the contrary, both the rights in the Bill of Rights and the 24 25 The intricate and controversial issues relating to balancing these patent rights against the right of access to medicines in the international trade context, on which a rich and varied literature exists, fall beyond the scope of this book. In the African context, see in this regard, for instance, TJ Bollyky ‘Balancing private rights and public obligations: Constitutionally mandated compulsory licensing of HIV/AIDS related treatments in South Africa’ (2002) 18 South African Journal on Human Rights 530-569; E Durojaye ‘Compulsory licensing and access to medicines in post-Doha era: What hope for Africa?’ (2008) Netherlands International Law Review 33; C van Wyk ‘Access to affordable HIV medicines in South Africa: Patents, parallel importation, generics and medical schemes’ (2006) 39 De Jure 1; YA Vawda ‘Tripped-up on TRIPS: The story of shrinking access to drugs in developing countries’ (2002) 13 Stellenbosch Law Review 352; Vawda & Brooks (n 11 above) 55-81; C Visser ‘“Affordable medicines” exceptions to patent rights under the TRIPS agreement: Some pointers for South Africa?’ (2001) 34 The Comparative and International Law Journal of South Africa 377. For discussion of the PMA litigation in this context, see Heywood (n 4 above) 139-156; Pieterse (n 15 above) 12-13 and authorities there cited. Rights, horizontality and regulation: Facing the public/private divide 133 normative principles of the Constitution as a whole significantly restrict regulatory discretion. Since government first embarked on the journey of health system reform, a handful of cases have been brought before the courts where regulatory schemes or rules were challenged on the basis of being either procedurally flawed or directly or indirectly infringing one or more rights in the Bill of Rights. In most, certain features of the regulations in question were declared unconstitutional, despite the court affirming the importance of their purpose and approving of their overall intention. From the judgments in these cases, a number of clear parameters and requirements for health system regulation are emerging. Before giving an overview of these parameters and requirements, it is apposite to briefly summarise the contentions and findings in the most prominent cases in question. Affordable Medicines Trust involved a challenge to a licensing scheme introduced under section 22 of the Medicines and Related Substances Control Act 101 of 1965, in terms of which restrictions were placed on who may dispense medicines and from what premises. The effect of the regulations – which, according to the government, were aimed at establishing ‘good dispensing practices’ in order to guarantee the safety and efficacy of medicines – was to significantly limit the circumstances under which health care practitioners, rather than pharmacies, could dispense medicines. It was claimed that this infringed the right of health care practitioners to freely choose their profession, in terms of section 22 of the Constitution, as well as their constitutional rights to dignity, freedom of movement and property. Further, it was contended that this exercise of regulatory power was not authorised by the empowering statute and thus fell foul of the ultra vires doctrine. The Constitutional Court unanimously dismissed the arguments pertaining to the rights in the Bill of Rights,26 but upheld the ultra vires challenge in relation to certain of the regulations. Specifically, the Court held that, to the extent that the regulations were aimed at safeguarding and advancing the interests of pharmacies in dispensing medicine, by denying dispensing licenses to doctors in areas where pharmacies were operative, they fell outside the scope of the empowering legislation and were hence ultra vires and unconstitutional.27 The challenge in New Clicks grew out of regulations passed pursuant to the 1997 Medicines and Related Substances Control Amendment Act, in terms of which limits were placed on the profit margins that pharmacies were allowed to add to dispensed medicines. A slew of administrative and constitutional law challenges were mounted against the regulations, which 26 27 Affordable Medicines Trust (n 20 above) paras 100, 105. Paras 115-19, 123. 134 Chapter 5 were clearly aimed at making medicines more affordable. While emphasising the constitutional legitimacy and necessity of price-control measures in the pharmaceutical sector and finding that the bulk of the regulations passed constitutional muster, the majority of the Constitutional Court found that the ‘single exit price’ prescribed by the regulations was not appropriate, and fell to be set aside as being unconstitutional.28 The members of the Court differed as to the reasons for this finding, though for many it related specifically to the failure of the regulations to pay attention to the specific needs and circumstances of rural and courier pharmacies, as will be discussed in more detail below. A small number of further regulations were set aside for various reasons, including that they were overly vague, fell short of the standards set by the Promotion of Administrative Justice Act 3 of 2000 (PAJA) and were unreasonable. Finally, in Hospital Association of SA Ltd v Minister of Health (HASA),29 the Gauteng North High Court found that regulations pertaining to the compilation and publication of a reference price list for health services, passed pursuant to sections 90(1)(u) and (v) of the National Health Act and aimed at establishing non-mandatory guidelines for the cost of medical services that could be used by medical schemes to determine the extent of their benefits, were invalid. This was because the regulations were found to be procedurally flawed, mostly because of severe deficiencies in the consultation process.30 In addition, the Court was of the opinion that the guidelines were set at a level that was irrationally and unreasonably low, which rendered them unfair, inappropriate and hence unlawful.31 In all three of the above cases, the courts emphasised that, first of all, all regulations passed in the constitutional state had to conform to the rule of law and the principle of legality.32 This appears to be both a general requirement and to be specifically relevant where regulations impact on the exercise of individual rights, as section 36 of the Constitution posits adherence to the legality principle as threshold for the constitutional limitation of rights. In New Clicks, Sachs J stated that the constitutional principle of legality required, in this context, 28 29 30 31 32 New Clicks (n 22 above) paras 7 (per the Court), 404 (per Chaskalson CJ), 527 (per Ngcobo J), 654-655, 666 (per Sachs J), 676 (per Moseneke J). Hospital Association of South Africa Ltd v Minister of Health; ER24 EMS (Proprietary) Limited v Minister of Health; South African Private Practitioners Forum v Director-General of Health 2010 (1) BCLR 1047 (GNP). Para 27, 161. Paras 118-120, 161. The HASA judgment has attracted criticism for undervaluing the extent to which the right to have access to health care services requires the government to lower medicine prices through mechanisms such as these. See J Berger & A Hassim ‘Regulating private power in health’ (2010) 11 ESR Review 6. Affordable Medicines Trust (n 20 above) para 49; New Clicks (n 22 above) paras 32, 236, 313 (per Chaskalson CJ); 612-613, 632 (per Sachs J); 716 (per Moseneke J); HASA (n 26 above) para 39. See also Kyalami Ridge (n 19 above) paras 51, 54, 114. Rights, horizontality and regulation: Facing the public/private divide 135 compliance not only with the empowering statute, but with general constraints on the exercise of public power flowing from the nature of our constitutional democracy, in particular the requirement that government be open, responsive and accountable.33 Requirements hence flowing from the principle of legality and enforced in the cases included that regulations had to fall within the confines of the empowering statute (and were accordingly ultra vires and invalid where they did not),34 had to be clear and precise (and could accordingly be void for vagueness)35 and had to be passed by means of open and transparent processes (including meaningful consultation).36 In situations where health sector regulations constitute administrative action, they further have to adhere to the provisions of the PAJA.37 In New Clicks, the Court disagreed over whether the PAJA was applicable, although the majority assumed that it was.38 To the extent that the PAJA was applicable, Chaskalson CJ summarised its impact on health sector regulation to be that it requires of regulations to be lawful, procedurally fair and reasonable, and for regulators to provide reasons for their decisions.39 Further principles of administrative justice that were applied, in various guises, to the regulations challenged in the different cases included that regulations had to be rationally connected to a legitimate government purpose and that regulators had to have applied their minds to all relevant factors and circumstances, including the impact of their regulations on affected parties and on the enjoyment of rights in the Bill of Rights.40 Importantly, in both New Clicks and HASA, much of the decision turned on whether the challenged price control measures were reasonable, either in terms of the PAJA or as an independent requirement, which was held to be relevant to determining whether they were appropriate as required by the empowering legislation.41 This is particularly significant because, as discussed in earlier chapters, reasonableness has become the general yardstick by which the Constitutional Court determines whether policies aimed at giving effect to the right of access to health care services pass constitutional muster. To reiterate, the Court held in Grootboom that, in order to be reasonable, both the content and implementation of measures adopted to advance enjoyment of socio-economic rights had to be balanced, coherent, flexible, comprehensive and inclusive. Measures 33 34 35 36 37 38 39 40 41 New Clicks (n 22 above) para 632. See Affordable Medicines Trust (n 20 above) paras 50, 115-119; New Clicks (n 22 above) paras 6 (per the Court), 415 (per Chaskalson CJ). See New Clicks (n 22 above) paras 277, 415 (per Chaskalson CJ). See New Clicks (n 22 above) para 541 (per Ngcobo J), 734 (per Moseneke J); HASA (n 29 above) para 27. New Clicks (n 22 above) paras 95-96 (per Chaskalson CJ); HASA (n 29 above) para 40. For a summary of the various judges’ positions on the applicability of PAJA to the case, see New Clicks (n 22 above) para13. Para 143 (per Chaskalson CJ). Paras 541 (Per Ngcobo J), 675 (per Moseneke J). Paras 188 (per Chaskalson CJ), 666 (per Sachs J); HASA (n 29 above) paras 118-120. 136 Chapter 5 further had to be capable of facilitating the progressive realisation of the right, had to cater specifically for emergency situations and had to pay specific attention to the plight of the most vulnerable and desperate sectors of the population.42 In Treatment Action Campaign, the Court added that reasonableness also required of such measures to be transparent.43 Only Sachs J in New Clicks explicitly subjected the challenged regulations to a Grootboom-type reasonableness analysis. He found that the price control regulations had to be reasonable also in terms of section 27(2) of the Constitution, because they were explicitly aimed at the progressive realisation of the right to have access to health care services. As such, their reasonableness in terms of section 27(2) coincided with their appropriateness in terms of the empowering statute.44 As will be discussed in more detail below, judge Sachs found the regulations to be unreasonable, mainly because they impacted negatively on the position of vulnerable members of society, in failing to consider the circumstances of rural and courier pharmacies.45 While none of the other judges in New Clicks explicitly considered the reasonableness of the measures in terms of section 27(2), their findings of unreasonableness or inappropriateness of the dispensing fee also related to the impact of the fee on rural and courier pharmacies and, accordingly, on access to medicines by the vulnerable patients that these pharmacies serve.46 Similarly, the finding in HASA that the challenged reference price list was unreasonable turned, at least in part, on its perceived impact on the rights of affected health care professionals and their patients.47 Whether directly or indirectly, it would therefore seem that the reasonableness test developed in socio-economic rights judgments does present parameters for health sector regulation, at least insofar as such regulation impacts on access to health care by vulnerable sectors of society. While it has been criticised for operating in a conceptual vacuum and not linking adequately to the (as yet underdeveloped) content of the right to have access to health care services,48 the reasonableness standard is clearly of some use when it comes to evaluating health care policies for 42 43 44 45 46 47 48 Government of the RSA v Grootboom 2001 (1) SA 46 (CC) paras 39-44. Minister of Health v Treatment Action Campaign (No 2) 2002 (5) SA 721 (CC) paras 33, 36, 67-68, 123. New Clicks (n 22 above) paras 634-637, 647, 650-651, 653, 666. Paras 653-655. Paras 19 (per the Court); 404 (per Chaskalson CJ); 559, 563 (per Ngcobo J); 714 (per Moseneke J). HASA (n 29 above) paras 118-119. See, for example, D Brand ‘The proceduralisation of South African socio-economic rights jurisprudence, or “what are socio-economic rights for?”’ in H Botha et al Rights and democracy in a transformative constitution (2003) 33 37, 53-54; S Liebenberg ‘Needs, rights and transformation: Adjudicating social rights’ (2006) 17 Stellenbosch Law Review 5 31-33; M Pieterse ‘Resuscitating socio-economic rights: Constitutional entitlements to health care services’ (2006) 22 South African Journal on Human Rights 473 487. Rights, horizontality and regulation: Facing the public/private divide 137 constitutional compliance and to identifying and correcting flaws in laws and policies aimed at realising the right of access to health care services.49 The reasonableness of measures is also in issue where measures are found to limit rights of either private health care professionals or institutions, or of patients. Section 36(1) of the Constitution determines that limitations on rights in the Bill of Rights will pass muster only where, in addition to adhering to the principle of legality, they are ‘reasonable and justifiable in an open and democratic society based on human dignity, equality and freedom’. Section 36 proceeds to prescribe that the reasonableness and justifiability of a law or policy which limits a right in the Bill of Rights is assessed by way of a proportionality exercise, which takes account of 'the nature of the right; the importance of the purpose of the limitation; the nature and extent of the limitation; the relation between the limitation and its purpose; and less restrictive means to achieve the purpose'. In addition to being reasonable, any restriction on a fundamental right must therefore also be proportionate to the interests served by a particular measure. It is clear that concerns pertaining to the impact of health sector reform measures on the economic activity rights of health professionals and institutions on the one hand, and on the rights of patients to have access to health care services on the other, are relevant to their constitutional compliance. The following subsections will thus consider the parameters set by, first, health practitioners' freedom of occupational choice and, secondly, patients' right of access to health care services. 5.3.1 Health care practitioners’ freedom of occupational choice Many measures aimed at facilitating equitable access to health care services impact on corporate profit interests in the private health care sector, as well as on the lives and businesses of individual health care professionals. Because the former corporate interests do not enjoy independent constitutional protection, they tend, in litigation, to be conflated with the latter, private interests. It has through the years been argued that various measures, ranging from compulsory community service to restrictions on the geographical distribution of health care services – such as the unproclaimed ‘certificate of need’ provisions in the National Health Act – limit a range of health care professionals’ constitutional rights, including rights to equality, freedom of movement, 49 M Pieterse ‘Legislative and executive translation of the right to have access to health care services’ (2010) 14 Law, Democracy & Development 1 19, also chapter 2 above at 2.3. For an example of a scholarly attempt to evaluate a particular health policy aimed at facilitating equitable access to health care services by way of the reasonableness test as applied in socio-economic rights cases, see N Coetzer ‘The National Health Amendment Bill 2008 and governmental policy reform: How far is too far?’ (2009) 13 Law, Democracy & Development 40. 138 Chapter 5 freedom of conscience, belief and opinion, and, most pertinently, freedom of occupational choice.50 Section 22 of the Constitution, which grants everyone the right ‘to choose their trade, occupation or profession freely’, however allows for a degree of state interference with the exercise of professional liberties, in addition determining that ‘the practice of a trade, occupation or profession may be regulated by law’. In Affordable Medicines Trust, where the challenge to the regulations limiting the circumstances in which health care professionals could dispense medicines centred on section 22, the Constitutional Court explained that this meant that not all restrictions on the practice of a profession required justification in terms of section 36 of the Constitution. Instead, this would only be necessary where a measure limited the choice of profession or the ability to practice it. Regulatory measures which did not go as far as to do this, would comply with section 22 if they were rationally connected to a legitimate government purpose. Courts would thus not have to inquire into the proportionality of a regulatory restriction on economic activity in relation to the goal advanced thereby, unless the restriction amounted to a limitation of the choice or ability to practice a particular profession, or additionally infringed another right in the Bill of Rights.51 Since the measures in the present case were aimed at ensuring the safety and efficacy of dispensed medicines and impacted merely on the extent of health care professionals’ marginal economic activities, rather than on their ability or choice to practice medicine, the section 22 challenge was accordingly dismissed. It would therefore seem that measures which relate rationally to the compelling governmental purpose of ensuring equitable access to health care services will fall foul of section 22 of the Constitution only in circumstances where their impact is so severe as to significantly hinder the choice to enter or remain in the health or pharmaceutical professions. It may however be argued that this question of impact needs to be assessed in the context of the problems facing health care professionals in the South African health system generally, where the poor working conditions in the public health sector are often cited as a reason for health care professionals only being willing to practice in the private sector, or even for abandoning the profession or opting to practice it outside of South Africa.52 50 51 52 In relation to compulsory community service, see Heyns (n 18 above) 5-14; HCJ van Rensburg et al ‘Human resources for health and the health professions in South Africa’ in Van Rensburg (ed) (n 2 above) 361 372-373. In relation to certificates of need, see A Dhai & H Etheridge ‘Resource allocation’ in A Dhai & D McQuoid-Mason (eds) Bioethics, human rights and health law: Principles and practice (2011) 143 147; Pieterse (n 15 above) 16-17. Affordable Medicines Trust (n 20 above) paras 62-72, 92-94. See also New Clicks (n 22 above) para 661 (Per Sachs J). See Van Rensburg et al (n 50 above) 417-421; South African Human Rights Commission Report in the matter between Democratic Alliance, Mpumalanga and the Department of Health, Mpumalanga File Ref MP/1213/1060 (December 2013). Rights, horizontality and regulation: Facing the public/private divide 139 Over and above section 22, it is apparent from both the New Clicks and HASA judgments that the impact of regulatory measures on the economic viability of health care institutions and on the professional lives of health care professionals is nevertheless relevant to the question of whether measures are reasonable in terms of section 27(2) of the Constitution – or, in the context of the more restrictive inquiries in both cases, whether they are appropriate in accordance with the legislative provisions to which they aim to give effect. In both cases, the courts accepted the argument that the challenged regulations would likely have the effect of driving certain health care professionals out of business. Moreover, in both cases this was determinative of the finding that the regulations were unconstitutional, either because they were therefore thought to be unreasonable or inappropriate, or because it was felt that they failed to achieve their purpose as a result of this effect.53 However, New Clicks makes it clear that, when it comes to the reasonableness or appropriateness of regulatory measures, the focus of the inquiry is not so much on the economic or professional interests of health care institutions or professionals themselves – as would be the case in a s 22 challenge – but rather on the extent to which their economic and professional interests coincide with the purpose of the measures in question, namely to improve access to health care services.54 In this respect, the actual substantive standard underlying the inquiry appears to be patients' right of access to care, to which this discussion now turns. 5.3.2 Patients’ right of access to health care services Because almost all health sector reform measures ostensibly aim to achieve more equitable access to health care services, it is unsurprising that their constitutionality will often turn on whether they in fact have this effect. Indeed, the extent to which measures that limit rights in the Bill of Rights in pursuit of a worthy objective actually achieve that objective is one of the factors that must be considered in the course of a section 36 limitation analysis. The case law to date appears to suggest that measures which, whether through their impact on patients and health care professionals or otherwise, have the effect of actually diminishing access to care, will be unlikely to pass constitutional muster. This is particularly well illustrated by the outcome of New Clicks. For most of the judges writing in that case, the pharmaceutical price control measures in question were constitutionally offensive because they failed to take account of the circumstances of rural and courier pharmacies, who would feel their impact the hardest. Since both rural and courier 53 54 See New Clicks (n 22 above) paras 520, 526-527 (per Ngcobo J); HASA (n 29 above) paras 118-119. New Clicks (n 22 above). 140 Chapter 5 pharmacies primarily served communities whose access to medicines was particularly perilous, the Court held that their economic viability had to be taken into account when devising the price control measures. By failing to do so, the drafters of the measures risked driving rural and courier pharmacies out of business, hence reducing the availability of medicines to vulnerable sectors of society, even as they aimed to make medicines more affordable. While none of the judgments in New Clicks explicitly depicted this counterproductive effect of the regulations as a violation of the right to have access to health care services, it led most of them to conclude that this rendered the regulations unreasonable and hence inappropriate.55 As Moseneke J stated: ‘Implicit in the requirement of affordable medicines is a pricing regime that does not render medicines out of the reach of most users and thereby frustrate access to quality health care’.56 It is thus clear that, in order to pass constitutional muster, measures aiming to increase equitable access to medicines must, at least, not have the effect of diminishing such access. This accords with the obligation to respect the right of access to health care services, both in terms of international law and under section 7(2) read with section 27(1)(a) of the Constitution, which is understood to require that states refrain from actions which have the effect of disrupting, impeding or hindering existing access to health care services.57 Moreover, it corresponds with the international law principle that deliberatively retrogressive measures – namely, measures which have the effect of halting or reversing the progressive realisation of a particular socio-economic right – are generally not permissible, unless they can be justified by their positive effect on the overall realisation of the totality of socio-economic rights.58 That this, so-called ‘negative’, obligation inherent to the right to have access to health care services can have a far-reaching impact on the reform of the health system is apparent from the recent judgment of the Constitutional Court in Law Society of South Africa v Minister of Transport.59 Amidst a range of unsuccessful constitutional challenges against different amendments to the Road Accidents Funds Act 56 of 1996, the Court 55 56 57 58 59 New Clicks (n 22 above) paras 19 (per the Court); 404 (per Chaskalson CJ); 526-527, 557-563 (per Ngcobo J); 654-655 (per Sachs J); 714, 772, 781 (per Moseneke J). See also HASA (n 29 above) para 118, where the Court remarked that the challenged measures were unreasonable because they might have the effect of driving health care professionals out of the health care sector, hence compromising the right of access to health care services. New Clicks (n 22 above) para 714. See UNCESCR General Comment 14 (n 10 above) para 34; S Liebenberg ‘The interpretation of socio-economic rights’ in S Woolman et al (eds) Constitutional law of South Africa (2 ed, OS 2003) ch 33 17-19. See UNCECR General Comment 14 (n 10 above) para 32; Principle 72 of the Limburg Principles on the Implementation of the International Covenant on Economic, Social and Cultural Rights UN Doc E/CN 4/1987/17/Annex (1987); Guideline 14(e) of the Maastricht Guidelines on Violations of Economic, Social and Cultural Rights reprinted in (1998) 20 Human Rights Quarterly 690. 2011 (1) SA 400 (CC). Rights, horizontality and regulation: Facing the public/private divide 141 upheld a challenge against a regulation which limited the financial liability of the Road Accidents Fund in relation to medical treatment for injuries sustained in the course of motor vehicle accidents, to an amount ‘determined in accordance with the Uniform Patient Fee Schedule for fees payable to public health establishments by full-paying patients, prescribed under … the National Health Act’.60 Since this tariff would only be sufficient to cover health care services received in the public health sector, it meant that survivors of motor vehicle accidents who were not themselves able to pay for medical treatment in the private health sector, would have to be treated for their injuries in the public sector. While this would not ordinarily pose a problem, the Court held that it was constitutionally problematic in relation to those persons who become quadriplegic or paraplegic as a result of motor vehicle accidents. This was because the evidence before the Court showed that the public health sector was not able to adequately provide the life-long, specialised care and rehabilitation required by quadriplegics and paraplegics, who would be ‘constantly at risk in a state hospital as a result of the chronic lack of resources, paucity of staff and inexperience in dealing with spinal cord injuries’.61 Indeed, some expert witnesses concluded that the quality of state hospital care for quadriplegics and paraplegics was so inadequate as to place them at ‘material risk of untimely death due to untreated complications’.62 The prescribed tariff was accordingly held to be unreasonable for failing to cater for the needs of quadriplegics and paraplegics. It therefore infringed the right to have access to health care services and was declared unconstitutional.63 The consequences of the Law Society judgment for the future of health sector regulation in South Africa are profound. The judgment shows that it will not be constitutional for measures aimed at establishing universal, equitable access to health care services to scale back the extent of people's existing access to health care services in the private health care sector, unless it is certain that the public health service is able to cater for their specific health needs by providing required services of adequate quality. Again reflecting the conventional understanding of the obligation to respect the right of access to health care services, the Law Society judgment in this respect also calls to mind the judgment of the majority of the Canadian Supreme Court in the matter of Chaoulli v Attorney General, Quebec that it breached the rights to life and personal inviolability of citizens of Quebec to forbid them to purchase private health insurance, in 60 61 62 63 Regulation 5(1) of 21 July 2008, issued by the Minister of Transport in terms of sec 17(4B)(a) of the Road Accidents Funds Act 56 of 1996. Law Society (n 59 above) para 94. See also paras 91-98. Para 94. Paras 100, 108. 142 Chapter 5 circumstances where the public health care system was not able to provide them with adequate care within a reasonable time.64 But the restraining effects of the obligation to respect the right of (existing) access to health care services are not unproblematic. This is because current patterns of access to care reflect financial and policy choices which, either in their intention or their effect, advance the health care interests of wealthy and middle-class patients at the expense of those of the poor. Insisting that existing levels of access to care may not be scaled back may thus serve to entrench the inequalities inherent to these current patterns of access.65 Indeed, the Chaoulli majority judgment has been severely criticised in Canada, for privileging the civil and political entitlements of upper and middle class Canadians to timely private sector care above the equality-interests of poor Canadians to receive care based on need rather than their ability to pay.66 In South Africa, where current patterns of unequal access to health care services overlaps acutely with historical racial and economic disadvantage, overzealous enforcement of the obligation to respect access to health care services, if interpreted to include privileged South Africans' current levels of access to private sector care, has the potential of significantly hindering efforts to reduce the gap between private and public sector care through measures such as the introduction of a National Health Insurance system. Yet, the Law Society judgment highlights that the limited accessibility and affordability of private health care services presents only one side of the constitutionally untenable state of the dual South African health system – the other side being the severe and persistent problems regarding the availability and quality of health services in the public sector, with some studies going as far to suggest that even poor South Africans prefer to pay out of pocket for exorbitantly expensive private sector care, rather than to subject themselves to the inefficiencies of the public health care system.67 Indeed, Law Society appears to warn that regulatory efforts to bridge the gap between the private and public health care sectors may be unconstitutional if they do not result in all patients being able to access care 64 65 66 67 Chaoulli (n 4 above) paras 4, 40, 43 (per Deschamps J for the majority); 104-105, 122, 124, 158 (per McLachlin CJC & Major J, concurring separately). See S Liebenberg ‘Grootboom and the seduction of the negative/positive duties dichotomy’ (2011) 26 SA Public Law 37 39, 44, 46, 56, 58. See the minority judgment in Chaoulli (n 4 above) paras 174, 274 (per Binnie & Lebel JJ) as well as, for example, JM Gilmour ‘Fallout from Chaoulli: Is it time to find cover?’ (2006) 44 Osgoode Hall Law Journal 327 338-341; Jackman (n 4 above) 359-362; B Porter ‘A right to health care in Canada: Only if you can pay for it’ (2005) 6 ESR Review 8. See S van der Berg et al Financial implications of a National Health Insurance Plan for South Africa: Study commissioned by the Hospital Association of South Africa (2010) 23-25. For judicial notice on the extent of the inadequacies of public sector health care, see also S v Tembani 2007 (1) SACR 355 (SCA) paras 27-29. Rights, horizontality and regulation: Facing the public/private divide 143 of an appropriate quality, that accords with a range of implicated constitutional rights.68 While Sachs J’s warnings in New Clicks that the obligations flowing from the right to have access to health care services and the accompanying reasonableness standard should not be used to retard transformation of the health system, and that ‘the maintenance of “business as usual” is not a constitutional principle’,69 must be taken seriously, it would therefore appear that, in order to withstand constitutional scrutiny, a reduction in the scope and extent of access to private health care services in South Africa will have to be accompanied by a concomitant increase in the availability and quality of public sector care, at least to a point where scaling back the quality of care to which upper and middle-class South Africans currently have access does not amount to a relegation to inadequate care.70 This appears to have been acknowledged by the architects of National Health Insurance, with strengthening of the public health sector being envisaged as an essential prerequisite for the implementation of the system.71 5.4 Beyond regulation: Towards enforcing human rights obligations in the private health sector 7272 Despite longstanding reluctance in liberal legal cultures to hold private entities responsible for compliance with human rights standards, especially when it comes to socio-economic rights, it is increasingly recognised that the extent to which private entities are involved in basic service delivery, the nature and scope of the power that they exercise in this respect and the impact of their actions on the enjoyment of citizens’ socio-economic rights warrant holding them accountable to at least certain aspects of relevant human rights standards.73 68 69 70 71 72 73 See also Premier, Province of KwaZulu-Natal v Solly [2011] JOL 27017 (SCA) para 33, where the SCA remarked that it is not acceptable for public sector patients to be treated with less respect for their rights to dignity and privacy than is the norm in the private health sector. New Clicks (n 22 above) para 660. This is not to say that the standard of care available to all in the public sector need in all respects correspond to that previously available to a few in the private sector, but does imply insisting on compliance with a constitutionally derived standard of adequacy or appropriateness of care. See P Wayburne Developing a constitutional paradigm for national health insurance in South Africa (2014) (unpublished PhD thesis University of the Witwatersrand, on file with author) ch 3 and 4. See also arguments of Van der Berg et al (n 67 above) 135. See MP Matsoso & R Fryatt ‘National Health Insurance: The first 18 months’ (2012/ 2013) South African Health Review 21 24-26; McIntyre et al (n 10 above) 477. In this section, I elaborate on arguments advanced in M Pieterse ‘Indirect horizontal application of the right to have access to health care services’ (2007) 23 South African Journal on Human Rights 157. Liebenberg (n 14 above) 464-465; Liebenberg (n 6 above) 331; Pieterse (n 72 above) 157-159; M Pieterse ‘Enforcing the right not be refused emergency medical treatment: Towards appropriate relief ’ (2007) 18 Stellenbosch Law Review 75 78-79. 144 Chapter 5 In South Africa, horizontal (private) application of constitutional rights is regulated primarily by subsecs 8(2)-(3) of the Constitution, which determine: (2) A provision of the Bill of Rights binds a natural or juristic person if, and to the extent that, it is applicable, taking into account the nature of the right and the nature of any duty imposed by the right. (3) When applying a provision of the Bill of Rights to a natural or juristic person in terms of subsection (2), a court – (a) in order to give effect to a right in the Bill, must apply, or if necessary develop, the common law to the extent that legislation does not give effect to that rights; and (b) may develop rules of the common law to limit the right, provided that the limitation is in accordance with section 36(1). These somewhat vague provisions make it clear that not every right, and not all obligations imposed by a particular right, are capable of horizontal application. A further factor that is clearly relevant to the question of whether a particular private individual or entity should be bound by a specific constitutional requirement, is the nature or identity of that individual or entity and the role that it fulfils in socio-economic rightsprovision. In this respect, it has been argued that factors such as the nature and extent of the power exercised by the individual or entity, the degree to which this power emulates state powers, the impact of the power on the enjoyment of socio-economic rights and the nature and special characteristics of the relationship between the individual or entity and any specific rights-holders should be taken into account, when ascertaining whether and to what extent the individual or entity should be bound by specific human rights standards.74 Based on these factors, several commentators have argued through the years that international pharmaceutical companies should bear responsibility for the significant impact of their actions on the enjoyment of the right of access to essential medicines.75 Similarly, since they are in the business of rendering access to health care services and medicines respectively, and since their power in this respect is similar in nature and effect to that of state health care institutions, there have been increasing calls to require private hospitals and pharmacies to comply with some of the health-related obligations in the Bill of Rights.76 Finally, due to the significance of their work for the enjoyment of the right of access to health care services, the extent of public investment in their careers and the 74 75 76 See Bilchitz (n 16 above) 775-777, 779; Chirwa (n 17 above) 4, 6; Ellmann (n 17 above) 444, 446, 462-467; Liebenberg (n 14 above) 467, 469; Pieterse (n 72 above) 161-162; M Pieterse ‘Relational socio-economic rights’ (2009) 25 South African Journal on Human Rights 198 200. See Elmann (n 17 above) 468; Liebenberg (n 14 above) 469. See McBeth (n 12 above) 135-137; Pieterse (n 72 above) 169; Pieterse (n 74 above) 202, 208. Rights, horizontality and regulation: Facing the public/private divide 145 special legal and social nature of their relationship with patients, it has also been contended that some human rights obligations should be enforceable against individual, private health care practitioners.77 But which socio-economic obligations should be horizontally applicable in this manner? Section 27(2) of the Constitution clearly limits the obligation to adopt reasonable legislative and other measures in pursuit of the progressive realisation of the right to have access to health care services to the state, leaving some to believe that the constitutional drafters did not intend for section 27(1)(a) to have any horizontal effect.78 However, it has convincingly been shown that section 27(2) is not exhaustive of the obligations imposed by the right of access to health care services and thus also does not altogether preclude its horizontal application.79 This said, not much clarity on the nature and extent of the horizontal dimensions of section 27(1) has thus far emerged from the jurisprudence of the Constitutional Court. This is, at least partly, because the Court's 'reasonableness' approach to socio-economic rights adjudication focuses almost exclusively on the content of measures taken by the state in terms of section 27(2) and thus leaves little scope for the deliberation of the different levels of obligation engendered by section 27(1)(a) of the Constitution.80 Thus far, the only allusion to the possible application of section 27(1)(a) against private health care service providers has been a passing remark in a separate concurring judgment in Soobramoney v Minister of Health (KwaZulu-Natal), where Madala J alluded to the important role played by the private health care sector in rendering complex medical treatment beyond the resource capacity of the state, stated that he regarded allegations that the appellant was not informed of his options to access private sector care as 'a serious indictment for the private sector' and concluded that ‘the private sector is not before us and we cannot condemn it without hearing it’.81 Almost all commentators agree that private entities should be bound at least by the obligation to respect the right of access to health care services, meaning that they are legally prohibited from disrupting, 77 78 79 80 81 See Pieterse (n 72 above) 169-170; Pieterse (n 15 above) 14. See P Carstens & A Kok ‘An assessment of the use of disclaimers by South African hospitals in view of constitutional demands, foreign law and medico-legal considerations’ (2003) 18 SA Public Law 430 437, 440; I Currie & J de Waal The Bill of Rights handbook (5ed 2005) 53; DL Pearmain ‘Contracting for socio-economic rights: A contradiction in terms?’ (2006) 69 Tydskrif vir Hedendaagse Romein-Hollandse Reg 287 293. See Ellmann (n 17 above) 461; Liebenberg (n 14 above) 468; JC Mubangizi ‘Public health, the South African Bill of Rights and the socio-economic polemic’ (2002) Tydskrif vir die Suid-Afrikaanse Reg 343 345; Pieterse (n 72 above) 163. See Chirwa (n 17 above) 5; Pieterse (n 72 above) 164. Soobramoney (n 1 above) para 48. Chaskalson P, writing from the majority, declined to remark on the private sector’s attitude in this regard, para 35. 146 Chapter 5 denying, impairing or obstructing existing access to health care services without constitutionally acceptable justification.82 Moreover, there appears to be consensus that the equality threshold underlying the notion of 'everyone' being entitled to access to health care services should be horizontally enforceable, in accordance with the prohibition on unfair discrimination by private entities under section 9(4) of the Constitution. This means that it would be unlawful for a private entity to withhold medical treatment where this refusal is arbitrary or amounts to unfair discrimination.83 Then, if, as some of the judgments in New Clicks imply, the notion of 'access' to health care services is understood to encompass the international law standards of accessibility, affordability, acceptability and quality of health care,84 private health service providers may well be obliged to maintain, or refrain from interfering with, the acceptability, accessibility, availability and quality of health care services.85 In particular, private health care facilities or practitioners may be regarded as constitutionally obliged to render health care services of appropriate quality.86 There is further consensus that the right not to be refused emergency medical treatment in section 27(3) of the Constitution does apply horizontally.87 This has been confirmed by the legislature, with section 5 of the National Health Act determining that no private or public health care provider may refuse to render emergency medical treatment when this is required. However, as alluded to in chapter 2 above, the content, scope and means of enforcement of this obligation remains unclear. In Soobramoney, the Constitutional Court held forth a vague and fairly restrictive interpretation of the obligations imposed by section 27(3) of the Constitution,88 which does not assist private hospitals and health care practitioners in ascertaining the scope of their positive obligations in terms of this provision.89 Furthermore, regulations aimed at elaborating the 82 83 84 85 86 87 88 89 See Chirwa (n 14 above) 564; Chirwa (n 17 above) 5-6; Liebenberg (n 57 above) 58; McBeth (n 12 above) 146; Pieterse (n 12 above) 26; Pieterse (n 72 above) 165. Chirwa (n 14 above) 564-655; Chirwa (n 17 above) 4; Pieterse (n 72 above) 165-166. See further item 3 of the Schedule to the Promotion of Equality and Prevention of Unfair Discrimination Act 4 of 2000, which contains an illustrative list of unfair practices in the health sector. For elaboration on these standards in international law, see UNCESCR General Comment 14 (n 10 above) para 12. See New Clicks (n 22 above) para 706 (per Moseneke J). Chirwa (n 14 above) 565; McBeth (n 12 above) 149; Pieterse (n 72 above) 166-167. See Carstens & Kok (n 78 above) 442; McBeth (n 12 above) 151; Pieterse (n 72 above) 167 and authorities cited there. P Carstens & D Pearmain Foundational principles of South African medical law (2007) 160161; Chirwa (n 17 above) 5; Currie & De Waal (n 78 above) 53; Ellmann (n 17 above) 460; Pieterse (n 72 above) 167-168; Pieterse (n73 above) 80. Soobramoney (n 1 above) paras 17-21, 35-36. For a summary of relevant criticism, see Pieterse (n 73 above) 83-85 and authorities cited there. Pieterse (n 49 above) 13. Rights, horizontality and regulation: Facing the public/private divide 147 content of the obligation in terms of the National Health Act have not yet been proclaimed.90 As to the question of how to enforce private socio-economic obligations, section 8(3) of the Constitution clearly indicates a preference for their indirect elaboration through regulation in terms of legislation, in which case all the considerations in the previous subsections of this chapter are relevant. Absent such regulation, section 8(3) proceeds to indicate that the preferred manner to vindicate rights privately would be by way of developing and/or limiting the rules of the common law, which would conceivably also generate more effective remedies for private rightsinfringements.91 Further relevant in this respect is section 39(2) of the Constitution, which determines that courts must promote the spirit, purport, and objects of the Bill of Rights in every matter where they develop the common law or interpret legislation. It is therefore clear that, in instances where citizens' rights to have equitable access to health care services are not adequately protected against private invasion through existing health sector regulation, they are entitled to look to the courts for protection and redress.92 Courts, which are given broad and flexible remedial powers by section 38 of the Constitution, are well-equipped to fulfil a protective role in this regard by way of developing the common law, with which they have much experience. There further exists a substantial body of common law rules pertaining to various aspects of the doctor patient relationship, which may incrementally be applied or developed to give effect to patients' constitutional rights and to private health care providers' corresponding obligations. For example, I have argued elsewhere for the development of common law rules pertaining to the circumstances under which health care practitioners are obliged to treat particular patients, in emergency and nonemergency situations respectively, in order to give effect to the constitutional rights of access to medical treatment and non-refusal of emergency care.93 Lamentably, however, in the one case where South African courts have been called upon to develop the common law in order to give effect to section 27(1)(a) of the Constitution in the private sphere, the Supreme Court of Appeal (SCA) declined to do so. In Afrox Health Care v Strydom, 90 91 92 93 On the urgent need for legislative clarification of the scope of the obligation under sec 27(3), see specifically Carstens & Pearmain (n 87 above) 160, 162; Pieterse (n 49 above) 13-15. Private health care providers have taken to self-define the scope of their obligation in this regard, in rather restrictive terms. See, for example, Hospital Association of South Africa Private Hospital Review 2008: Examination of Factors Impacting on Private Hospitals (2008) 67, 69-70. See Currie & De Waal (n 78 above) 53-54; Pearmain (n 78 above) 289-290; Pieterse (n 72 above) 162. Carstens & Kok (n 78 above) 441; Liebenberg (n 14 above) 472; Liebenberg (n 6 above) 334; Pieterse (n 74 above) 208. See Pieterse (n 72 above) 171-174; Pieterse (n 73 above) 86-89. 148 Chapter 5 the SCA overturned a judgment of the Pretoria High Court, which found that a standard-form contractual clause, in terms of which a private hospital was exempted from delictual liability for rendering negligent care, was contra bonis mores and unenforceable. The High Court found that, since private hospitals were providing a basic service that was the object of a constitutional right, they had to do so within constitutional parameters, and that patients accordingly had a legitimate expectation that private health services would be rendered with due skill and care.94 The applicant, who did not read the hospital admission contract he was signing and was not alerted to existence of the clause, was held to have acted in accordance with this legitimate expectation. Since the clause infringed this expectation – and, by implication, the quality dimensions inherent to the right of access to health care services – it was held to be invalid and unenforceable. On appeal, however, the SCA, left open the question of whether private hospitals were in any manner bound by section 27(1)(a) of the Constitution95 and instead inquired into whether the clause was against public policy – which, it claimed, had to be understood in light of constitutional values including those associated with section 27(1)(a), but also in light of the 'constitutional value' of freedom of contract.96 Holding that the clause neither consisted an absolute barrier to receiving care, nor mandated or encouraged the rendering of negligent or substandard care,97 and finding that the patient could not establish that there was inequality in bargaining power between himself and the hospital,98 the SCA concluded that the clause was not against public policy. It accordingly upheld the appeal. The SCA's Afrox judgment has been widely criticised for its 'particularly formalistic and impoverished' interpretation of the right to have access to health care services, which fails to appreciate that the notion of access to care entails more than mere physical access to health care establishments.99 The Court has rightly been accused of overlooking that the contract in question was for the provision of the object of a constitutional right, of denying the obvious and significant inequalities in bargaining power that exist between private hospitals and their prospective patients and of privileging the commercial value of pacta sunt servanda over the constitutional values associated with the protection of the right of access to health care services.100 In doing so, the SCA has effectively precluded patients from availing themselves of their only meaningful 94 95 96 97 98 99 100 Strydom v Afrox Healthcare [2001] 4 All SA 618 (T) 626b-h, 627f-g. Afrox Healthcare v Strydom 2002 (6) SA 21 (SCA) para 15. Paras 17-18; 22. Paras 19; 21. Para 12. Liebenberg (n 6 above) 363. See also Carstens & Pearmain (n 87 above) 467-468. See, for example, D Brand ‘Disclaimers in hospital admission contracts and constitutional health rights’ (2002) 3 ESR Review 17; Carstens & Kok (n 78 above) 444; Carstens & Pearmain (n 87 above) 467; RM Jansen & BS Smith ‘Hospital disclaimers: Afrox Health Care v Strydom’ (2003) 28 Journal for Juridical Science 210 217-218; H Lerm Rights, horizontality and regulation: Facing the public/private divide 149 remedy for infringement of the quality dimensions of their right of access to health care services in the private health sector, where exclusion clauses such as that signed by the applicant have become the norm.101 Overall, it is clear that the Constitution allows for the legislative and judicial elaboration of a network of private obligations flowing from socioeconomic rights. Where these obligations are established by way of legislation or regulations, their constitutional underpinning will often justify any infringement occasioned by them on the exercise of affected private parties' commercial or civil liberties, provided that such infringement adheres to certain basic constitutional guidelines, is not disproportionate to the interests advanced and has the actual effect of enhancing equitable access to health care services. Absent legislation or regulation, private obligations may nevertheless be established, embroidered and enforced by courts called upon to vindicate the right to access to health care services within private relationships. In this respect, however, it would seem that the South African judiciary's ingrained deference to the legislature, its unwillingness to interfere in the operation of markets and its preference for the preservation of the current state of common law may significantly retard transformation of the unequal power relations and associated diminished access to care that pervade much of private health service delivery.102 5.5 Conclusion This chapter has shown that the rights in the Bill of Rights, particularly the right of access to health care services, have an important role to play in the reconfiguration of the inequities inherent in the dual South African health system. The constitutional status of the state's obligation to ensure equitable access to health services, together with the fact that the Bill of Rights allows for the limitation of private economic interests and for the elaboration and enforcement of horizontal human rights obligations, provide powerful backing for legislative and regulatory efforts aimed at reducing the prevailing gap in access to quality health care services. Much as the Constitution also sets the parameters and limits of health sector regulation, it ensures that the extent and quality of citizens' access to health care services is a central consideration when courts decide on adherence to such limits and parameters.103 Importantly, it appears that courts have subjected the commercial and other interests of private health 100 ‘Exclusionary clauses in medical contracts revisited’ (2011) 74 Tydskrif vir Hedendaagse Romein-Hollandse Reg 47 61-64; Liebenberg (n 14 above) 476; Pieterse (n 74 above) 208209. 101 Liebenberg (n 6 above) 364; Pieterse (n 72 above) 176-177. 102 See further Liebenberg (n 6 above) 334-335. 103 Pieterse (n 15 above) 20. 150 Chapter 5 care practitioners and corporate establishments to patients’ right of access to care, in that, save in instances where regulations are so stringent as to negate the choice or ability to practice health care, the restriction of commercial profits or activities of health care service providers will be constitutionally problematic only where it leads to an unjustifiable diminution in access to health care. Whereas the politics of health sector regulation often polarise the powerful forces of the state and the private health care industry, the constitutional right of access to health care services therefore ensures that the voice of citizens enters the arena and becomes determinative of the admissibility of particular attempts at regulation.104 Furthermore, the chapter has shown that measures aimed at bridging the gap between the public and private health systems cannot be entirely one-sided. Where the effect of such measures is to relegate patients who previously accessed private sector care to the public health sector, this will be constitutionally compliant only where the quality of comparable care in the public sector is sufficient. The reining in of the excesses of the private health system must therefore be accompanied with, if not preceded by, the structural improvement of the public system. Finally, to the extent that private entities remain implicated in the delivery of health care services in South Africa, constitutional rights both require and provide the basis for the elaboration of a network of private rights and obligations, which must ensure that relevant constitutional rights are duly respected, protected, promoted and fulfilled. Courts and the democratic branches are equally tasked with ensuring that this becomes a reality. 104 See Hassim et al (n 3 above) 183; Heywood (n 4 above) 147; Pieterse (n 15 above) 1213; M Pieterse ‘Health, social movements and rights-based litigation in South Africa’ (2008) 35 Journal of Law & Society 364 379. CHAPTER 6 RIGHTS AS RESTRAINTS?: BALANCING INDIVIDUAL LIBERTIES AND PUBLIC HEALTH 6.1 Introduction On the foreground were questions framed as involving the extent to which the community is entitled to protect itself at the expense of the rights of the individual. This collective/individual tension becomes acute in the management of diseases where the source of contagion and mode of transmission involve human behaviour.1 Sometimes, rights are in conflict. State measures purporting to protect and advance certain rights may, in particular contexts, infringe upon others, requiring reconciliation between the objectives served by the different sets of rights. This is not only the case in the regulatory context (as was illustrated in chapter 5), but also in other instances where communal rights can only be protected through a measure of individual sacrifice. It is therefore important for a study into the impact of rights on the health system to acknowledge that rights embody tensions within themselves, which can complicate the system’s ability to respond to external health threats. More often than not, focusing only on treatmentrelated rights when studying the health system obscures the fact that the operation of the system impacts also on a myriad of other rights, which must be respected in advancing the system’s overall aims. This chapter thus focuses on the constraining effect of rights on the ability of the system to achieve these aims, in the specific context of disease prevention and the protection of environmental health. Given their crucial public importance and their frequently coercive nature, public health measures, that aim to curb the spread of infectious 1 E Cameron ‘Legal and human rights responses to the HIV/AIDS epidemic’ (2006) 17 Stellenbosch Law Review 37 51. 151 152 Chapter 6 diseases,2 present a textbook example of such tensions between individual liberties and broader societal objectives. The trade-offs perceived as being inherent to these tensions are considered to be particularly sensitive, since they appear to involve either the sacrifice of fundamental individual interests or the compromise of public health and safety. They also often occur in the context of acute stigma, fuelled by an environment of fear, uncertainty, or even outright public hysteria.3 Yet, to regard human rights and public health as being in binary opposition and to depict their reconciliation in times of health-threatening epidemics as requiring either of them to yield to the other is overly simplistic.4 Similarly, it is erroneous to view the public health/human rights trade-off as simply boiling down to a choice between upholding individual or communal interests. Disease has individual (behavioural) as well as societal (health-system-related and other structural) determinants. To over-emphasise either of these inevitably distorts the picture.5 On the one hand, persons whose rights and freedoms are curtailed under a particular public health measure also derive significant individual benefit from enhanced population health flowing from a well-functioning health protection system. On the other, there is immense collective benefit associated with the protection of the fundamental rights of all individuals within a society.6 Moreover, public health and human rights can be polarised only if our understanding of human rights is restricted to civil and political rights. Where a society also acknowledges and protects socio-economic rights, public health protection itself contributes to the fulfilment of important 2 3 4 5 6 Whereas the notion of public health refers broadly to a range of collective measures aimed at securing, advancing and protecting population health, the focus of this chapter is on the subset of public health measures aimed at protecting the public against the spread of dangerous infectious diseases. On the meaning of public health and the various measures that fall under it see, for example, R Bowser & LO Gostin ‘Managed care and the health of a nation’ (1998-1999) 72 Southern California Law Review 1209 1217-1218; LO Gostin et al ‘The law and the public’s health: A study of infectious disease law in the United States' (1999) 99 Columbia Law Review 59 67; S Nadasen Public health law in South Africa: An introduction (2000) 15-16. See EB Abbott ‘Law, federalism, the Constitution and control of pandemic flu’ (2008) 9 Asian-Pacific Law & Policy Journal 185 200; Cameron (n 1 above) 51; E Cameron & E Swanson ‘Public health and human rights – the AIDS crisis in South Africa’ (1992) 8 South African Journal on Human Rights 200 232; A McHarg ‘Reconciling human rights and the public interest: Conceptual problems and doctrinal uncertainty in the jurisprudence of the European Court of Human Rights’ (1999) 62 The Modern Law Review 671 678-679; M Pieterse & A Hassim ‘Placing human rights at the centre of public health: A critique of Minister of Health, Western Cape v Goliath’ (2009) 126 South African Law Journal 231 231. L London ‘Confinement in the management of drug-resistant TB: The unsavoury prospect of balancing individual human rights and the public good’ (2008) 1 South African Journal of Bioethics & Law 11 11-12. See M Pieterse ‘The interdependence of rights to health and autonomy in South Africa’ (2008) 125 South African Law Journal 553 556, 565. JF Childress & RG Bernheim ‘Beyond the liberal and communitarian impasse: A framework and vision for public health’ (2003) 55 Florida Law Review 1191 1194-1195; McHarg (n 3 above) 677. Rights as restraints?: Balancing individual liberties and public health 153 human rights obligations. For instance, the United Nations Committee on Economic Social and Cultural Rights has indicated that it understands the right to health in article 12 of the International Covenant on Economic, Social and Cultural Rights as entailing, inter alia, an obligation to establish and maintain a responsive public health system that effectively combats the spread of infectious epidemic and endemic diseases.7 Several regional human rights treaties also explicitly guarantee a right to disease prevention as part of the right to health,8 whereas others acknowledge that public health measures may legitimately limit individual liberty.9 These provisions recast the public health/individual rights impasse as a conflict between competing rights, rather than between rights and an extraneous, hostile government purpose. While the fact that public health measures serve an important human rights purpose does not completely insulate them from human rights-based attack, it does mean that public health objectives cannot simply be dismissed outright in every instance where they impact detrimentally on the exercise of individual liberties.10 Where public health objectives and individual liberties clash, it would neither be correct to assert that individual interests must simply yield to the common good – as is sometimes advanced by public health proponents – nor be entirely appropriate to assume that the collective goal is plainly trumped by individual liberties in a Dworkinian sense – as could be argued in contexts where the legitimacy of civil and political rights, but not of socio-economic rights, is assumed.11 Given that tensions between public health and individual liberties are essentially tensions between competing rights, it may seem fitting to resort to a fairly straightforward balancing or proportionality exercise when having to reconcile individual liberties with the public health objectives that appear to demand their limitation.12 But, as Denise Meyerson warns, 7 8 9 10 11 12 UNCESCR General Comment No 14 The Right to the Highest Attainable Standard of Health (Art 12 of the Covenant) (2000) para 16, pertaining specifically to art 12(2)(c) of the ICESCR, which determines that steps taken towards the progressive realisation of the right to health must include ‘[t]he prevention, treatment and control of epidemic, endemic, occupational and other diseases’. See art 16 of the African Charter on Human and Peoples’ Rights; art 11 of the European Social Charter; arts 10-11 of the Additional Protocol to the American Convention on Human Rights in the Area of Economic, Social and Cultural Rights. See art 5(1)(e) of the European Convention on Human Rights. See Bowser & Gostin (n 2 above) 1223; London (n 4 above) 12. On the manner in which socio-economic rights bolster the legitimacy of laws and policies aimed at their progressive realisation where such laws and policies also impact detrimentally on the exercise of civil or commercial rights, see M Pieterse ‘The legitimizing/insulating effect of socio-economic rights’ (2007) 22 Canadian Journal of Law & Society 1 2, 8, 18. Pieterse & Hassim (n 3 above) 232. On the application of the Dworkinian ‘rights as trumps’ model in this context, see McHarg (n 3 above) 673-674; D Meyerson ‘Why courts should not balance rights against the public interest’ (2007) 31 Melbourne University Law Review 873 878, 881-884, 902. On balancing as the appropriate paradigm where competing rights are at stake, see McHarg (n 3 above) 673-674; Meyerson (n 11 above) 879, 886. 154 Chapter 6 the premise that both the individual right and the collective purpose behind its limitation carries equal moral weight would more often than not result in jeopardising the individual right. This is simply because a public health measure would inevitably appear to serve the interests of a greater number of persons and thus to outweigh individual concerns. In order to protect vulnerable individuals and to afford due weight to fundamental individual rights, Meyerson accordingly argues that the balancing scales should at the outset be tilted towards upholding the fundamental interests that are infringed, rather than those that are advanced, by the measures in question.13 An approach to balancing that would allow limitation of individual liberties only in exceptional circumstances, notwithstanding the human rights-legitimacy of the limiting measure, would appear particularly necessary in the context of public health. This is, first, because public health measures are steeped in an authoritarian and coercive tradition and are often invoked by governments as a knee-jerk reaction to epidemics, in times of widespread panic, and under significant public pressure to be seen to be ‘doing something’ to curb the (often exaggerated) threat of disease14 – think, for instance, of the often far-reaching and disproportionate state responses to the worldwide H1N1 ‘swine flu’ epidemic in 2010. They accordingly tend to be overzealous and to impact harshly on the rights of a particularly vulnerable subset of society – in this case, those who are ill or in danger of falling ill.15 Secondly, public health policies tend, either in their conception or their implementation, to disproportionately target members of stigmatised and marginalised groups and also themselves contribute to stigmatising the ill,16 hence giving rise to additional human rights violations.17 Accordingly, such measures tend to be counterproductive, in that their effect is to drive people away from the health system, for fear of the adverse physical and social consequences that might 13 14 15 16 17 Meyerson (n 11 above) 878, 882-884, 889, 902. See also Childress & Bernheim (n 6 above) 1202. See M Pieterse ‘Disentangling illness, crime and morality: Towards a rights-based approach to HIV prevention in Africa’ (2011) 11 African Human Rights Law Journal 57 62 and authorities cited there. L Gostin & JM Mann ‘Towards the development of a human rights impact assessment for the formulation and evaluation of public health policies’ (1994) 1 Health & Human Rights 58 74; M Kirby ‘The never-ending paradoxes of HIV/AIDS and human rights’ (2004) 4 African Human Rights Law Journal 163 167; London (n 4 above) 12; Meyerson (n 11 above) 886; Pieterse & Hassim (n 3 above) 231; D Puzio ‘An overview of public health in the new millenium: Individual liberty v public safety’ (2003-2004) 18 Journal of Law & Health 173 186, 189-190. On disease-related stigma and its interaction with patterns of social marginalisation and vulnerability see, for instance, S Burris ‘Disease stigma in US public health law’ (2002) 30 Journal of Law, Medicine & Ethics 179; PM Eba Stigma[ta]: AIDS Review 2007 (2008) 23-52; M Pieterse ‘Impeding access? Stigma, individual responsibility and access to post-HIV-exposure-prophylaxis (PEP) in South Africa’ (2011) 30 Medicine & Law 279 281; Pieterse (n 14 above) 59-62 and authorities cited there. For example, the public response to the 2003 SARS epidemic evoked stigmatisation of and discrimination against persons of Asian descent in afflicted Western nations. See Childress & Bernheim (n 6 above) 1205 and authorities cited there. Rights as restraints?: Balancing individual liberties and public health 155 flow from being labelled as a ‘public health threat’. This logically has a negative impact on public health, thereby undermining not only individual liberties, but also the collective socio-economic rights that the measures were designed to advance.18 Indeed, it has convincingly been shown that respect for and protection of individual rights enhances public health, by reducing stigma, by increasing public trust and voluntary participation in public health programmes and by directing affected individuals towards, rather than away from, the health system, in order to obtain appropriate care.19 This has especially been borne out by worldwide experiences relating to HIV and AIDS, where the scale of the pandemic, the unprecedented stigma associated with the disease, as well as its unique biological and social characteristics, have highlighted the limitations and shortcomings of 'traditional' approaches to public health. While conventional, coercive public health measures (such as isolation and disease notification measures), as well as more punitive responses (such as criminalising HIVtransmission), have proved simply to be ineffective, impractical and counterproductive in curbing the epidemic,20 human rights-based approaches (such as information campaigns, anti-discrimination protection and treatment-based incentives for testing) have had significant positive consequences, not only for individuals living with the disease, but also for public health.21 In summary, therefore, public health objectives may not be trumped outright by individual liberties and may, due to themselves being based in the obligation to protect the right to health and related socio-economic rights, legitimately limit such liberties. However, it is nevertheless imperative, also for the sake of the public health, that measures aimed at its protection respect individual rights as far as is possible. To ensure this, it is necessary to approach the exercise of balancing public health objectives against individual rights from a starting point that favours upholding individual rights. As will be shown below in the South African context, a structured limitations analysis (such as that required by the majority of contemporary human rights systems) allows for (and indeed requires) such an approach. 18 19 20 21 Burris (n 16 above) 182; Cameron (n 1 above) 53; Cameron & Swanson (n 3 above) 232; Gostin & Mann (n 15 above) 63, 75; Gostin et al (n 2 above) 92-93; LO Gostin & Z Lazzarini Human rights and public health in the Aids pandemic (1997) 51, 103. Cameron (n 1 above) 54-55; Cameron & Swanson (n 3 above) 202; Childress & Bernheim (n 6 above) 1197, 1207; Gostin & Mann (n 15 above) 75, 77; Gostin & Lazzarini (n 18 above) 43, 47; London (n 4 above) 12; Pieterse & Hassim (n 3 above) 232; Pieterse (n 14 above) 68. See, for instance, Cameron & Swanson (n 3 above) 204, 207; Eba (n 16 above) 34-38; Z Lazzarini et al ‘Evaluating the impact of criminal laws on HIV risk behavior’ (2002) 30 Journal of Law, Medicine & Ethics 239 247; Pieterse (n 14 above) 64-66 and authorities cited there. See Cameron (n 1 above) 52-55; Cameron & Swanson (n 3 above) 212-213; Kirby (n 15 above) 167-168. 156 Chapter 6 In section 6.2 below, I exposit and elaborate on a human rights impact assessment developed by American public health scholars to measure the appropriateness of state responses to public health threats. This assessment assists in identifying and understanding the various considerations that come into play when balancing public health objectives against individual rights and that should accordingly inform a limitations analysis. Section 6.3 then shifts the focus to the South African health system. It briefly characterises the historical role of public health law within the health system, before illustrating how the introduction of a constitutionally ensconced Bill of Rights has disrupted the public health paradigm. Within the new, constitutional paradigm, the section then sets out the different civil and political rights, as well as socio-economic rights, that are implicated by coercive public health measures. Subsequently, it contemplates the manner in which the general limitations clause in section 36 of the South African Constitution facilitates the balancing of competing rights and interests in this context. In section 6.4, I conduct a human rights analysis of the current South African government responses to a burgeoning MDR and XDR-tuberculosis (XDR-TB) epidemic, in order to show how the principles enunciated in earlier sections should play out in practice. Thereafter, the section provides a critique of the South African High Court decision in Minister of Health, Western Cape v Goliath,22 arguing that the human rights analysis employed there in relation to the involuntary isolation of XDR-TB patients was severely defective. In conclusion, section 6.5 advances that, given the level of individual sacrifice often required for effective public health in times of epidemics, it is necessary for public health measures to uphold the individual rights of affected citizens as far as is possible. 6.2 Assessing the human rights impact of public health policies In the mid-1990s, well-known American public health scholars Lawrence Gostin and Jonathan Mann advocated for the application of a multi-step ‘human rights impact assessment’ to public health laws and policies in the United States.23 Their analysis, which elaborated on the UN Economic and Social Council's Siracusa Principles on the Limitation and Derogation Provisions in the International Covenant on Civil and Political Rights, aimed to traverse the gap between conventional public health thinking and human rights scholarship and activism, and to illustrate that human rights compliance could enhance the effectiveness of public health policies.24 Their proposed approach to incorporating human rights concerns in the design and evaluation of public health policies has since been emulated 22 23 24 2009 (2) SA 248 (C). Gostin & Mann (n 15 above). See also Gostin & Lazzarini (n 18 above) 58-67. See Gostin & Mann (n 15 above) 59-60. Rights as restraints?: Balancing individual liberties and public health 157 closely by many scholarly models for balancing public health objectives against the burdens they impose on individual liberties,25 also in the South African constitutional context.26 For Gostin and Mann, the first step in reconciling the objectives served by a particular public health measure with respect for individual rights should be to develop a clear and precise understanding of the public health purpose sought to be achieved by the measure in question. This would require an appreciation of the real nature of the public health threat that is to be targeted, which in turn depends on the availability of accurate and comprehensive epidemiological data.27 Clearly articulating the purpose of potentially invasive public health measures, Gostin and Mann argued, would not only ensure that the measures are well-targeted, but would also ‘facilitate public understanding and debate around legitimate health purposes’ and would unmask ‘prejudice, stereotypical attitudes, or irrational fear’ that may underlie a particular legal measure.28 Once the purpose of a public health measure has been clarified, its effectiveness should be assessed, again with reference to available epidemiological data. Policies that either fail to achieve – or, at least, to significantly advance – their stated purpose, or that are, in fact, inimical to that purpose, should accordingly not lightly be pursued.29 For instance, many countries abandoned initial policies aimed at isolating persons who tested HIV positive as a means of preventing the spread of HIV, as these were not only impractical and ineffective, but also directly subverted their own purpose by discouraging HIV testing.30 To pass muster, public health policies should further be well-targeted. This means that they must neither be over-inclusive – such as where quarantine or isolation measures target all persons likely to suffer from a particular disease rather than only those who would be at risk of spreading it – nor so under-inclusive as to defeat their purpose – as would be the case where only a minority sub-group of those likely to spread a disease are targeted for quarantine or isolation. Policies should further be regarded with suspicion where they target, or impact disproportionately on, members of vulnerable, stigmatised or minority groups.31 25 26 27 28 29 30 31 See, for example, Childress & Bernheim (n 6 above) 1202-1203; R Coker et al ‘Detention and the evolving threat of tuberculosis: Evidence, ethics, and law’ (2007) 35 Journal of Law, Medicine & Ethics 609 613. For an earlier application of the Siracusa principles in the same context, see Cameron & Swanson (n 3 above) 202-203. See, for instance, London (n 4 above) 13; Pieterse & Hassim (n 3 above) 232-233. Gostin & Mann (n 15 above) 61; Gostin & Lazzarini (n 18 above) 57; Coker et al (n 25 above) 612-613. Gostin & Mann (n 15 above). See also Gostin & Lazzarini (n 18 above) 58-59. Gostin & Mann (n 15 above) 61-62. See also Gostin & Lazzarini (n 18 above) 59-60; Childress & Bernheim (n 6 above) 1202; Coker et al (n 25 above) 614. Cameron & Swanson (n 3 above) 212-213. Gostin & Mann (n 15 above) 63-69. See also Gostin & Lazzarini (n 18 above) 62-63; Gostin et al (n 2 above) 121; Childress & Bernheim (n 6 above) 1204; Coker et al (n 25 above) 613. 158 Chapter 6 Once the goal, effectiveness, reach and coverage of a coercive public health policy has been established, the focus should turn to the human rights burden it imposes. This involves ‘identifying all potential infringements on human rights [allowed for or required by the policy] and evaluating those likely to occur’.32 For Gostin and Mann, this requires ascertaining the nature of each right infringed, the degree of each infringement – usually corresponding to the invasiveness of the public health intervention – the frequency and scope of the infringement as well as its duration.33 As will be further elaborated below, the civil and political rights typically impacted by public health policy are the rights to freedom and security of the person, bodily integrity, freedom of movement, equality and privacy. Socio-economic rights that tend to be implicated in this context include the right to health, rights pertaining to conditions of detention and rights to basic necessities such as food, water and social security. In then weighing the extent of the human rights burden imposed by a measure against the importance of its purpose, the crucial question to be asked is whether the measure represented the least invasive manner in which the purpose could be achieved. Where options with a less restrictive impact on human rights clearly and practicably present themselves, a challenged policy is unlikely to survive scrutiny.34 This was also the crux of the finding of the European Court of Human Rights in the well-known matter of Enhorn v Sweden, in which the Court declared unlawful the isolation of an HIV-positive patient, who was considered to be at risk of spreading the disease, given that less restrictive means to achieve the purpose of the measure were not considered.35 Accordingly, on Gostin and Mann's model, implementation of a public health policy should proceed only where the purpose of the policy has been clearly articulated; where the policy is realistically able to achieve its goal, is well-targeted and non-discriminatory; where the human rights burden it imposes is justified by the importance and urgency of the public health purpose at stake and where this purpose cannot be achieved through less restrictive means. Finally, Gostin and Mann advise that implementation of the measure should proceed only in relation to persons and circumstances where there is a real, probable and significant risk of the public health threat materialising, and that implementation processes should be fixed, fair, transparent and duly respectful of the interests of impacted individuals.36 32 33 34 35 36 Gostin & Mann (n 15 above) 71. Gostin & Mann (n 15 above). See also Gostin & Lazzarini (n 18 above) 63-65. Gostin & Mann (n 15 above) 74-75. See also Siracusa Principle 11; Cameron & Swanson (n 3 above) 202-203; Childress & Bernheim (n 6 above) 1203; Gostin & Lazzarini (n 18 above) 65-66; Gostin et al (n 2 above) 123-124. (2005) 41 EHRR 633 paras 44, 55. Gostin & Mann (n 15 above) 75-77. See also Enhorn v Sweden (n 35 above) paras 36-37, 44; Gostin & Lazzarini (n 18 above) 66-67; Gostin et al (n 2 above) 121-123. Rights as restraints?: Balancing individual liberties and public health 159 6.3 Public health and the South African Bill of Rights The prevailing legal culture under apartheid was an authoritarian one, and the public health law of the era was no exception. Laws passed by the sovereign parliament awarded extensive coercive powers to public health authorities, which could not be checked for adherence to human rights standards. Resulting public health policies were often potentially severely restrictive, discriminatory and disproportionate to their goals. For example, the state’s response to the dawning Aids crisis in the mid-1980s was to pass measures allowing for the compulsory notification of HIV status and the potential isolation – or, in the case of non-citizens, deportation – of Aids-sufferers. While never implemented – due to their impracticality, given the face and the scale of the epidemic – these measures were symptomatic of the totalitarianism of the era and of the government's general disregard for human rights.37 A completely different legal culture was ushered in with the democratic dispensation. The interim Constitution, for the first time in South African history, contained a Bill of Rights, which required an entirely different approach to law. As Etienne Mureinik contended at the time: If the new Constitution is a bridge away from a culture of authority, it is clear what it must be a bridge to. It must lead to a culture of justification - a culture in which every exercise of power is expected to be justified; in which the leadership given by government rests on the cogency of the case offered in defence of its decisions, not the fear inspired by the force at its command. The new order must be a community built on persuasion, not coercion.38 The 'culture of justification' of which Mureinik spoke was also to pervade public health law, where it had the effect of elevating the rule of law and adherence to the proportionality principle in the formulation and implementation of public health policies.39 As to substantive requirements for public health policies, the 1996 Constitution contains a range of civil and political rights alongside equally justiciable socio-economic rights, several of which inform the individual/ collective balancing exercise in relation to public health. 37 38 39 See, specifically in relation to the response to HIV, Cameron & Swanson (n 3 above) 201; E Cameron ‘Human rights, racism and Aids: The new discrimination’ (1993) 9 South African Journal on Human Rights 22 22-23; Cameron (n 1 above) 49-50; C Ngwena ‘Responses to Aids and constitutionalism in South Africa’ (2003) 24 Obiter 299 300, 302-303. E Mureinik ‘A bridge to where? Introducing the interim Bill of Rights’ (1994) 10 South African Journal on Human Rights 31 32. See London (n 4 above) 13-14; Ngwena (n 37 above) 300-301, 305, 312; Pieterse (n 14 above) 67. 160 Chapter 6 On the one hand, the international law obligation to ensure ‘the prevention, treatment and control of epidemic, endemic, occupational and other diseases’ through establishing and maintaining a responsive public health system,40 finds constitutional expression in a range of provisions in the Bill of Rights. Prime amongst these is section 24(a) of the Constitution, which determines that ‘everyone has the right to an environment that is not harmful to their health or well-being’. While there has been little judicial or legislative contemplation of the nature and scope of the section 24 right and of the manner in which it interacts with the other rights in the Bill of Rights,41 the adoption and implementation of public health measures are clearly required by the state's obligation to protect the right.42 The Constitutional Court has recently indicated, in the related context of section 35(2)(e) of the Constitution, that non-compliance with this obligation to provide protection against infectious diseases should, in appropriate circumstances, lead to the state being held liable for damages in delict.43 Access to effective health promotion and protection services is then further required by, for instance, the right of access to health care services in section 27(1)(a) and the right to dignified conditions of detention, including adequate health care, in section 35(2)(e). The preamble of the National Health Act 61 of 2003, which forms the legal backbone of the South African health system and the legislative source of current public health powers, therefore unsurprisingly lists these rights, alongside section 24(a), as constituting its constitutional foundation and the basis for its objectives. At the other end of the scale, the civil right that is most pertinently implicated by coercive public health policies is that to individual autonomy, different elements of which are entrenched in section 12 of the 1996 Constitution. Section 12 determines (in relevant part): (1) Everyone has the right to freedom and security of the person, which includes the right – (a) not to be deprived of freedom arbitrarily or without just cause … (2) Everyone has the right to bodily and psychological integrity, which includes the right – (a) to make decisions concerning reproduction; 40 41 42 43 ICESCR art 12(2)(c), as interpreted by UNCESCR General Comment 14 (n 7 above) para 16. For a discussion, see L Feris ‘Constitutional environmental rights: An under-utilised resource’ (2008) 24 South African Journal on Human Rights 29 30, 35. London (n 4 above) 12-13. Section 7(2) of the Constitution determines that ‘the state must respect, protect, promote and fulfill the rights in the Bill of Rights’. Lee v Minister of Correctional Services 2013 (2) SA 144 (CC) paras 59-60, 65. See also the judgment of the SCA in this matter, reported as Minister of Correctional Services v Lee 2012 (3) SA 617 (SCA) paras 36, 38, 42, 55, 59. The facts and finding of Lee are discussed in chapter 3 above at 3.2.7. Rights as restraints?: Balancing individual liberties and public health 161 (b) to security in and control over their body; and (c) not to be subjected to medical or scientific experiments without their informed consent. Public health policies tend to impact on two aspects of section 12. First, measures such as isolation or quarantine, which involve a physical restriction of liberty, are clearly in conflict with the section 12(1)(a) right not to be deprived of freedom arbitrarily or without just cause. According to the Constitutional Court in De Lange v Smuts NO, deprivations of physical liberty will offend section 12(1)(a) unless they are both substantively just and procedurally fair.44 To be regarded as substantively just, law or policy which restricts physical liberty must be rationally connected to a constitutionally acceptable legal objective – in this case, protecting the public health. Moreover, it may restrict liberty only to the extent necessary to achieve the objective and only where there are no less restrictive means available to do so.45 Where the deprivation of liberty amounts to detention, the conditions of detention will also impact on the substantive justice thereof.46 While the degree of procedural justice required in cases of non-punitive detention – such as isolation for purposes of public health – would vary depending on the nature, purpose, duration, locality and circumstances of detention, the Constitutional Court seems at least to require that such detention must be pursuant to procedures that are legally prescribed, fair and that allow for some degree of judicial oversight in appropriate circumstances.47 Any form of public health isolation or quarantine which falls short of the standards enunciated here will be found to limit section 12 of the Constitution. This does not necessarily mean that they would be unconstitutional, but instead triggers an inquiry into whether they are constitutionally justifiable in terms of the general limitations clause, as will be elaborated below. Secondly, where public health measures involve medical treatment, they implicate the right to ‘security in and control over the body’, which forms part of the broader right to bodily and psychological integrity in section 12(2) of the Constitution and is often construed to encompass the doctrine of informed consent.48 Adherence to the tenets of informed consent is crucial for public health programmes, since voluntary 44 45 46 47 48 1998 (3) SA 785 (CC) paras 17-23. Paras 30, 40-41, 101, 134, 176. See also M Bishop & S Woolman ‘Freedom and security of the person’ in S Woolman et al (eds) Constitutional law of South Africa (2 ed 2006) ch 40 41; I Currie & J de Waal The Bill of Rights handbook (5ed 2005) 296-298; J de Waal ‘Revitalising the Freedom Right? De Lange v Smuts NO 1998 (3) SA 785 (CC)’ (1999) 15 South African Journal on Human Rights 217 223-224; Pieterse & Hassim (n 3 above) 236-238. Pieterse & Hassim (n 3 above) 239-240. See also notes 53-55 below and accompanying text. De Waal (n 45 above) 221, 226. See also De Lange (n 44 above) paras 57, 91, 101, 134, 143, 179; Bishop & Woolman (n 45 above) 22, 36-37, 42-44; Currie & De Waal (n 45 above) 301; Pieterse & Hassim (n 3 above) 239-240. Gostin & Mann (n 15 above) 74; Pieterse (n 5 above) 558-560 and authorities cited there. 162 Chapter 6 compliance and adequate dissemination of information are key to their success.49 The doctrine's constitutional ensconcement further means that legal provisions which authorise medical treatment without informed consent in the interests of the public health – such as, for example, provisions which authorise mandatory immunisation50 – will be held to limit the right to bodily integrity and will thus be impermissible in the absence of constitutionally acceptable justification. Apart from the right to freedom and security of the person, coercive public health measures frequently impact the right to freedom of movement – such as where patients are physically restricted in the course of isolation or quarantine measures – as well as the right to privacy – as in the case of publicly notifiable diseases, or where physicians are authorised to breach doctor-patient confidentiality and warn patients’ contacts that they are at risk of contracting a particular disease.51 Because they inevitably target particular segments of the population, sometimes wrongly rely on generalisations and stereotypes and often have the (albeit mostly unintended) effect of exacerbating illness-related stigma, public health measures also frequently require justification for the extent to which they infringe upon the rights to dignity and equality.52 A number of socio-economic rights are also impacted by public health measures. First, where isolation or quarantine measures involve the detention of patients or their contacts in health facilities or the like, rights which prescribe minimum conditions of detention are implicated. Section 35(2)(e) of the Constitution, which determines that everyone who is detained, including every sentenced prisoner, has the right to conditions of detention that are consistent with human dignity, including at least exercise and the provision, at state expense, of adequate accommodation, nutrition, reading material and medical treatment has been held to apply also to instances of non-criminal detention, such as 49 50 51 52 Gostin & Mann (n 15 above) 72; WE Parmet ‘Informed consent and public health: Are they compatible when it comes to vaccines?’ (2005) 8 Journal of Health Care Law & Policy 71 73, 98-101, 107. In South Africa, sec 7 of the National Health Act 61 of 2003 requires that a patient’s informed consent be obtained before a health service is provided, but allows for treatment without informed consent in certain exceptional circumstances, which include instances where treatment has been authorised by law or court order (sec 7(1)(c)) or where failure to treat would pose a significant risk to public health (s 7(1)(d). Section 9 of the Act further prescribes procedures to be followed in instances where a person is admitted to a health establishment without her informed consent. On infringements of the right to privacy by way of public health measures, see Puzio (n 15 above) 183, 185; S Roehrs ‘Privacy, HIV/AIDS and public health interventions’ (2009) 126 SALJ 360 as well as the facts and decision of the Constitutional Court in Mistry v Interim National Medical and Dental Council 1998 (4) SA 1127 (CC), which will be discussed below. See Burris (n 16 above) 186; Gostin & Mann (n 15 above) 64, 66-67; Pieterse (n 14 above) 59-62 and authorities there cited. Rights as restraints?: Balancing individual liberties and public health 163 detention for public health purposes.53 Commentators agree that, since public health detention is not punitive, the conditions set out in section 35(2)(e) constitute the bare minimum to which patients under isolation or quarantine should be entitled.54 Where public health detention fails to meet these minimum standards, this therefore not only impacts on the legitimacy of detention under section 12 of the Constitution, but may also amount to an independent breach of section 35(2)(e). The extent of the protection awarded by section 35(2)(e) overlaps with that which people enjoy under other socio-economic rights. For instance, section 35(2)(e)’s determination that detention creates an entitlement to adequate nutrition at state expense complements the right to have access to adequate food in section 27(1)(b) of the Constitution, and underlines the importance of ensuring that isolation or quarantine measures do not lead to infringements of rights to have access to the basic necessities of life.55 Given that section 35(2)(e) presents the minimum entitlements inherent to public health detention and does not exclude the operation of other socioeconomic rights, the rights of access to adequate food and water, social security and basic education ‒ guaranteed, respectively, by sections 27(1)(b); 27(1)(c) and 29 of the 1996 Constitution – also independently apply to public health patients. Public health policies will arguably fall foul of these rights not only where provision of the services to which they pertain is absent or inadequate in detention settings, but also where measures prohibit individuals from accessing these services, or from ensuring that their dependents do so. Importantly, section 35(2)(e)’s entitlement to ‘adequate medical treatment at state expense’ compliments the right to have access to health care services in section 27(1)(a) of the Constitution. Together with the right not to be refused emergency medical treatment under section 27(3) of the Constitution, these rights operate to ensure that public health detention would not be constitutionally legitimate where unaccompanied by adequate treatment for the medical condition in question.56 This accords with the accepted view under public health experts that the provision of medical treatment is a major incentive to ensure voluntary compliance with public health programmes and that it should accordingly form a central pillar of all such measures.57 53 54 55 56 57 Lawyers for Human Rights v Minister of Home Affairs 2004 (4) SA 125 (CC) paras 41-42. See also Goliath (n 22 above) para 34. Abbott (n 3 above) 202; Pieterse & Hassim (n 3 above) 238-239; C van Wyk ‘Tuberculosis and the limitation of rights in South Africa’ (2009) 72 Tydskrif vir Hedendaagse Romeins-Hollandse Reg 92 111. Abbott (n 3 above) 202, 204. Van Wyk (n 54 above) 111. See Minister of Health v Treatment Action Campaign (No 2) 2002 (5) SA 721 (CC) para 125; Cameron (n 1 above) 81; Kirby (n 15 above) 178; Puzio (n 15 above) 187. 164 Chapter 6 Indeed, it is possible to argue that public health measures should be tailored to enable access to medical care and that measures which, through their potential impact either on the right to freedom and security of the person, the right to equality or the right to privacy, have the effect of driving people away from the health system and which accordingly function as a barrier to accessing treatment, constitute an infringement of the right of access to medical care.58 For example, when, in the late 1990s, the South African government published draft regulations which intended to make HIV a notifiable disease, it was argued that the extent to which the regulations would discourage individuals from seeking HIV testing and treatment amounted to an infringement of section 27(1)(a) of the Constitution.59 It is clear that the South Africa Bill of Rights' comprehensive coverage of civil and political rights as well as socio-economic rights allows for a full and context-sensitive analysis of the human rights burden occasioned by particular public health measures. The Bill of Rights then also structures the weighing of this burden against the constitutional importance of the purpose of the measures that impose it. This it does by determining, in its general limitations clause, that infringements of rights in the Bill of Rights are not lawful unless they are capable of constitutionally acceptable justification. Section 36 of the 1996 Constitution determines: (1) The rights in the Bill of Rights may be limited only in terms of law of general application to the extent that the limitation is reasonable and justifiable in an open and democratic society based on human dignity, equality and freedom, taking into account all relevant factors, including – (a) The nature of the right; (b) The importance of the purpose of the limitation; (c) The nature and extent of the limitation; (d) The relation between the limitation and its purpose; and (e) Less restrictive means to achieve the purpose. (2) Except as provided in subsection (1) or in any other provision of the Constitution, no law may limit any right entrenched in the Bill of Rights. Section 36 will thus be the venue for the balancing of public health objectives against individual rights in all instances where they are found to be in conflict. It is significant that the general limitations clause – which places a burden of justification on the state for all infringements of individual rights – rather than the Constitution's derogation provision, 58 59 K Pillay ‘Notification of AIDS and health rights’ (1999) 2 ESR Review 7. Pillay (n 58 above). For further discussion of the draft policy (which was never pursued) and its potential negative impact on sec 27(1)(a) and other rights, see Ngwena (n 37 above) 311-312. The same argument has been made in relation to the actual or proposed criminalisation of HIV transmission in various jurisdictions. See Pieterse (n 14 above) 65-66. Rights as restraints?: Balancing individual liberties and public health 165 which provides for the suspension of certain individual rights during national states of emergency, is the venue for this balancing exercise. It is clear both from the phrasing of the derogation clause in section 37 of the Constitution and from the international law that informs it, that public health emergencies would rarely, if ever, qualify as national states of emergency – where the derogation of rights is required in order to ‘restore the peace and order’ in times where ‘the life of the nation is threatened by war, invasion, general insurrection, natural disaster or other public emergency’.60 Rather, public health emergencies would trigger the application of laws and policies which limit individual rights, which laws and policies should be capable of justification under section 36.61 Section 36 broadly envisages a proportionality or balancing inquiry, where the extent of the human rights burden imposed by a law is weighed against the reasons advanced in its justification.62 At the outset, the balancing scale is tilted towards upholding the individual right, in that the onus during the justification ‘stage’ of legal proceedings, where the infringement of an individual right is alleged, rests on the state.63 In line with Meyerson’s argument that the balancing scales for public health and human rights must at the outset be tilted towards the latter,64 this means that a public health measure which infringes individual rights would be unconstitutional and invalid unless the state discharges its onus and shows that the infringement is reasonable and justifiable in an open and democratic society based on dignity, equality and freedom. Commentators agree that this would require the state to present compelling reasons in favour of upholding the limitation.65 An important threshold requirement posed by section 36 is that limitations of individual rights may only take place in terms of law of general application. This presents an important safeguard for individual rights in that it requires all limitations thereof to adhere to the tenets of the legality principle.66 In the context of public health, this means that section 36 disallows the ad hoc limitation of rights in knee-jerk reaction to particular epidemics. Instead, it requires that reasonable and justifiable laws and policies, which adhere to all tenets of the legality principle, are 60 61 62 63 64 65 66 Quotation from sec 37 of the 1996 Constitution. See Siracusa Principle 39; Currie & De Waal (n 45 above) 802-803; N Fritz ‘States of emergency’ in S Woolman et al (eds) Constitutional law of South Africa (2ed, OS 03-07) ch 61 17-19. See Fritz (n 60 above) 6. Ngwena (n 37 above) 300-301; S Woolman & H Botha ‘Limitations’ in S Woolman et al (eds) Constitutional law of South Africa (2ed, OS 07-06) ch 34 93. Ngwena (n 37 above) 300; Woolman & Botha (n 62 above) 44-45; Currie & De Waal (n 45 above) 166-167. This accords with Siracusa Principle 12. See n 13 and accompanying text. Currie & De Waal (n 45 above) 164; Ngwena (n 37 above) 301-302; Pieterse & Hassim (n 3 above) 241. Currie & De Waal (n 45 above) 168-169; Pieterse & Hassim (n 3 above) 242-243; Woolman & Botha (n 62 above) 48-50. On the importance of adherence to the legality principle in the public health context, see further Enhorn (n 35 above) paras 36-37. 166 Chapter 6 ordinarily in place and may be invoked whenever the need arises to limit individual rights in the interests of public health. Once the threshold of legality is passed, section 36 broadly requires, first, that the state offers a constitutionally acceptable reason for limiting the right in question and, secondly, that it shows that there is sufficient proportionality between the rights infringed and the purpose served by the limitation.67 The provision then contains a list of factors that courts must consider when deciding these questions. These are particularly illustrative in the public health context, since they allow for consideration of all of the factors highlighted by Gostin and Mann's human rights impact assessment. First, section 36(1)(a) requires consideration of the nature of the rights infringed by the measure. Secondly, under section 36(1)(b), the importance of the purpose of the limiting measure should be considered. In this respect, courts are likely to attach significant weight to the fact that protection of public health is a social goal that coincides with the state's obligation to ensure a healthy and safe environment under section 24 of the Constitution.68 Section 36(1)(c) then requires an appreciation of the extent of the human rights burden imposed by the measure, before section 36(1)(d) mandates an inquiry into the effectiveness of the measure. Ultimately, as with Gostin and Mann’s analysis, the key question to be answered under section 36 is whether the purpose of the measure could be achieved in a manner that is less restrictive of the individual rights in question.69 A good example of the application of the proportionality exercise envisaged by section 36, in relation to the impact of public health measures on the right to privacy, is provided by the Constitutional Court judgment in Mistry v Interim Medical and Dental Council, which was decided in terms of the equivalent provisions of the interim Constitution. The case involved section 28(1) of the Medicines and Related Substances Control Act 101 of 1965, which gave inspectors of medicines extensive powers of inspection, search and seizure over places and premises where they had reason to suspect medicines covered by the Act were present. The constitutionality of the provisions was challenged by a health care practitioner, who had various items seized from his surgery which was searched, in terms of the provision, in his absence. The Constitutional Court found that the ambit of the provision was so broad as to constitute an infringement of the right to privacy,70 and proceeded to determine whether this infringement was reasonable and justifiable in terms of the general limitations clause. 67 68 69 70 Currie & De Waal (n 45 above) 176, 182-183. Pieterse (n 10 above) 3, 9. See also Siracusa Principle 25, where protection of public health is specifically regarded as a purpose that may justify the limitation of individual rights. Currie & De Waal (n 45 above) 184; Pieterse & Hassim (n 3 above) 232. Mistry (n 51 above) para 23. Rights as restraints?: Balancing individual liberties and public health 167 In conducting the proportionality exercise, the Court emphasised the important public health principle served by the provision, which was aimed at ensuring ‘the proper inspection and regulation of the multiple health undertakings in modern society which impact on the welfare and general well-being of the community’.71 However, it regarded the extent of the limitation occasioned by the provision on the enjoyment of the right to privacy as severe – seeing that the search powers in terms of the provision extended to ‘any premises’, including private residences, whereas the seizure powers allowed confiscation of a range of non-medicinal and potentially personal items, including ‘any document’.72 It was obvious to the Court that there were less restrictive means through which to achieve the purpose served by the provision,73 leading it to conclude that the extent of the invasion of the right to privacy occasioned thereby was ‘substantially disproportionate to its public purpose’.74 The provision was accordingly declared unconstitutional. Overall, it would appear that the Bill of Rights allows for an adequately tilted balancing framework, that includes consideration of all the factors regarded by Gostin, Mann and others, in relation to the weighing of individual rights against public health goals. In the following section, this framework is applied to a particularly controversial South African public health crisis. 6.4 Rights, limitations and the prevention of multidrug resistant (MDR) and extreme drug resistant (XDR) tuberculosis 6.4.1 Applying a human rights framework to current laws, policies and practices aimed at MDR and XDR-TB prevention South Africa’s growing MDR and XDR-TB crisis presents a major challenge to, and a serious indictment against, its public health system. While individual non-adherence to treatment for TB is often singled out as the main cause of drug-resistance,75 multiple systemic factors have shaped the nature and the scope of the South African epidemic. These include inadequate co-ordination of disease prevention efforts, lack of (or irregular) access to adequate care, poor conditions and inadequate 71 72 73 74 75 Para 26. Para 28. Para 29. Para 30. See C Bateman ‘XDR TB - Humane confinement “a priority”’ (2007) 97 South African Medical Journal 1026 1027; PA Carstens ‘The involuntary detention and isolation of patients infected with extreme resistant tuberculosis (XDR-TB): Implications for public health, human rights and informed consent: Minister of Health, Western Cape v Goliath 2009 2 SA 248 (C)’ (2009) 30 Obiter 420 420-421; Van Wyk (n 54 above) 92. 168 Chapter 6 infection control in hospitals and isolation facilities, poor implementation of directly observed treatment (DOTS) programmes and systemic failure to address the HIV pandemic.76 Moreover, severe poverty, difficulties in adhering to TB treatment – which is complicated, painful, ongoing and has significant side-effects – and widespread fear and stigma associated with the disease further contribute to limit the effectiveness of prevention and treatment efforts.77 Unfortunately, the government response to this burgeoning public health crisis has been haphazard and uneven. While aiming to provide community-based and directly observed TB treatment where the capacity to do so exists, and to educate the community about the dangers of TB, methods of preventing infection and the importance of seeking and adhering to treatment, the Department of Health has simultaneously pursued isolation of MDR and XDR-TB patients. Ostensibly aimed at curbing the spread of the epidemic while at the same time ensuring proper treatment-administration and adherence, implementation of isolation policies has been inconsistent. Patients have for instance only been isolated in areas where there are facilities to care for them, and then only when beds in facilities become available. There are also reports of patients being periodically discharged and readmitted into isolation facilities, for various reasons. This has obviously curtailed the effectiveness of isolation measures. Moreover, the duration and poor conditions of isolation – likened, by some patients, to prison conditions – as well as the poor preparation and support of isolated patients and the fact that, according to a somewhat bizarre social security policy, indigent patients forfeit their disability or social security grants for the period of their hospitalisation, have undermined voluntary co-operation therewith and have sparked significant patient protests as well as high-profile 'escapes' from detention-facilities.78 Disconcertingly, the above practices have been pursued in the absence of a legal framework. When the 2003 National Health Act – which contains provisions pertaining to medical treatment without consent but 76 77 78 See Bateman (n 75 above) 1028; LO Gostin ‘The resurgent tuberculosis epidemic in the era of AIDS: Reflections on public health, law and society’ (1995) 54 Maryland Law Review 1 128; London (n 4 above) 12, 17; Pieterse & Hassim (n 3 above) 233, 244-245; KH Rothenburg ‘Something old, something new: The challenge of tuberculosis control in the age of AIDS’ (1994) 42 Buffalo Law Review 715 755; JA Singh et al ‘XDR-TB in South Africa: No time for denial or complacency’ (2007) 4 PLOS Medicine 19 20; 23; D van Rensburg et al ‘Tuberculosis control in South Africa: Reasons for persistent failure’ (2005) 1 Acta Academica Supplementum 1 31-41. For recent figures on the state of the TB epidemic in South Africa, see N Redelinghuys ‘Health and health status of the South African population’ in HCJ van Rensburg (ed) Health and health care in South Africa (2ed 2012) 237 273-74. See London (n 4 above) 11; Pieterse & Hassim (n 3 above) 233-234; Van Rensburg et al (n 76 above) 31-32, 39-41; Van Wyk (n 54 above) 94-95. See Bateman (n 75 above) 1027-1028; Pieterse & Hassim (n 3 above) 234, 241; Singh et al (n 76 above) 20-21. Rights as restraints?: Balancing individual liberties and public health 169 not to isolation per se – was brought into operation, previously applicable regulations pertaining to isolation and other disease prevention measures were repealed, but never replaced. At the time of writing, isolation practices had for some 7 years been guided by draft Department of Health guidelines, which have no legal status. Commentators have uniformly lambasted this state of affairs, which obviously fails to adhere to the principle of legality.79 Involuntary isolation of MDR and XDR-TB patients in the manner described above imposes a significant human rights burden. It clearly limits the right to freedom of movement in section 22 of the 1996 Constitution. When pursued routinely, it also infringes the right to freedom and security of the person in section 12, given increasing evidence of equally effective, but less restrictive, approaches to curbing the disease – involving a combination of directly observed treatment, community-based care and education of patients’ close contacts.80 This arguably justifies a conclusion that the extent to which liberty is being curtailed by current isolation practices is disproportionate to the objective of the curtailment. This infringement would be exacerbated where conditions of involuntary isolation are inadequate, which would also violate the right to dignified conditions of detention in section 35(2)(e) of the Constitution. The discontinuation of social security grants for the period of isolation infringes the right to have access to social security in section 27(1)(c), whereas the practice of isolation would further impact on the exercise of the rights to privacy (section 14), dignity (section 10), equality (section 9) and freedom of association (section 18).81 Moving to the general limitations clause in section 36 of the Constitution, it is clear that current isolation practices should be found unconstitutional simply for their failure to adhere to the principle of legality.82 But, even if regulations codifying the current isolation practices were to be duly promulgated, it is unlikely that they would survive the scrutiny envisaged by section 36. Whereas the public health purpose behind isolation practices – curbing the spread of a barely treatable, deadly disease – is clearly of crucial importance, this is not in itself sufficient to outweigh the significant human rights burden imposed by isolation in its current form. 79 80 81 82 See A Hassim et al The National Health Act 61 of 2003: A guide (2008) 26; A Nienaber ‘The involuntary isolation of patients with XDR-TB: Is the term “health service” in section 7 of Act 61 of 2003 interpreted too broadly?’ (2009) 24 SA Public Law 659 667; Pieterse & Hassim (n 3 above) 244; Van Wyk (n 54 above) 92, 99, 112. See Pieterse & Hassim (n 3 above) 242 and authorities cited there; Rothenberg (n 76 above) 754; Gostin (n 76 above) 127. On the extent of the human rights burden described here, see further London (n 4 above) 15-16; Pieterse & Hassim (n 3 above) 238; Van Wyk (n 54 above) 100. Pieterse & Hassim (n 3 above) 243. 170 Chapter 6 Three factors listed in section 36 weigh against upholding the current application of isolation guidelines. First, the extent of the limitation imposed by isolation on individual rights and its impact on the lives of patients and their dependants, which has to be taken into account in terms of section 36(1)(c), is severe. Given that XDR-TB is difficult (and sometimes impossible) to cure, isolation lasts many months, years or even indefinitely. It is also traumatic – patients are allowed limited contact with family members or friends, treatment is painful, unpleasant and associated with many side-effects, and conditions of isolation are often poor. Isolation further has dire economic consequences for the patient – who cannot engage in employment while hospitalized and will also not receive social grants – and for dependent family members.83 Secondly, concerning the relation between the limitation and its purpose in terms of section 36(1)(d), the haphazard implementation of isolation measures means that they are simply not effective. Indeed, when taking into account that TB contact transmission tends to occur before initial diagnosis, that conditions in isolation facilities sometimes contribute to the spread of TB and that fear of isolation prevents people from seeking diagnosis and care in the first place, there is a strong argument to be made that current practices are counterproductive.84 Thirdly, as alluded to above, there is increasing evidence that less restrictive measures, such as providing incentives for treatment adherence, directly observed treatment and community-based care are, in the most cases, at least equally effective in curbing the spread of drug-resistant TB.85 It is therefore clear that the human rights standards and limitation requirements contained in the Bill of Rights pose substantive requirements to which isolation measures must adhere in order to pass constitutional muster. First, isolation guidelines must satisfy the principle of legality. Then, given the above assessment in terms of section 36, guidelines may legitimately provide for isolation only as a last resort, in relation to particular patients who pose a clear and present danger to the public health, and in relation to whom all reasonable less restrictive measures have been attempted without success. The implementation of isolation policies must further aim at curbing their detrimental impact on the lives and rights of patients as far as is possible and must be accompanied by high levels of procedural justice.86 83 84 85 86 London (n 4 above) 16; Pieterse & Hassim (n 3 above) 241. Coker et al (n 25 above) 613; Gostin et al (n 2 above) 95; London (n 4 above) 14-15; Pieterse & Hassim (n 3 above) 241; Van Wyk (n 54 above) 107-108. Childress & Bernheim (n 6 above) 1203; Gostin et al (n 2 above) 124; London (n 4 above) 16; Pieterse & Hassim (n 3 above) 241-242; 245 and authorities cited there; Van Wyk (n 54 above) 109. These conclusions are supported by London (n 4 above) 16-17; Ngwena (n 37 above) 302; Pieterse & Hassim (n 3 above) 242; Singh et al (n 76 above) 21-23; Van Wyk (n 54 above) 110-112. Rights as restraints?: Balancing individual liberties and public health 6.4.2 171 How not to apply a human rights framework: Minister of Health, Western Cape v Goliath Given that the South African jurisprudence on the application of the right to freedom and security of the person is fairly well-developed, and since the structure of the balancing exercise to be conducted where laws and policies infringe on that right is explicitly constitutionally prescribed, it is both surprising and disappointing that the first South African court called upon to consider the constitutionality of coerced isolation of XDR-TB patients, authorised the isolation after but the scantest of human rights analyses. In Minister of Health, Western Cape v Goliath, the Cape High Court granted an application by the provincial MEC for Health, for an order authorising compulsory detention of four infectious XDR-TB patients at a Cape Town treatment facility. Despite initially consenting to their isolation, the patients periodically absented themselves from the facility, out of dissatisfaction with the duration and conditions of their isolation, and in order to fulfil various personal responsibilities – including taking care of children and other family members and honouring financial obligations. Staff at the facility also complained that the patients were recalcitrant, unruly and disrespectful.87 In opposing the application, the patients claimed that their continued detention was in violation of the right to freedom and security of the person in section 12 of the Constitution and that the conditions of their isolation infringed the standards set by section 35(2)(e) of the Constitution. Two of the patients died during the course of the trial. Departing from the premise that ‘the respondents’ contact with their families and other members of the public creates a severe public health risk of infecting others with XDR-TB,’88 the Court accepted that the compulsory isolation of the respondents amounted to a deprivation of their freedom. However, it did not regard this deprivation as being ‘arbitrary’ or ‘without just cause’, for the simple reason that both international and foreign law recognised that restriction of individual liberties in the interest of public health was sometimes justified.89 This was also sufficient reason for the Court to find that any infringement of the respondents’ rights to freedom of movement or security of the person occasioned by the isolation was both reasonable and justifiable in terms of section 36 of the Constitution.90 Whereas the Court expressed concern about the lack of a valid and workable regulatory framework applying to involuntary isolation in the interests of public health, it felt that, since isolation could be regarded as a 87 88 89 90 Goliath (n 22 above) paras 16-18. Para 15. Paras 19, 21, 29-30. Para 21. 172 Chapter 6 health service, it fell within the ambit of section 7 of the National Health Act 61 of 2003 – which provides for circumstances in which health services may be provided to patients without their informed consent – and that it was accordingly not in breach of the legality principle to isolate the respondents against their will.91 As to conditions of isolation, the Court was prepared to accept that section 35(2)(e) of the Constitution applied to persons in the position of the respondents, but dismissed the respondents’ counter-application for a declaratory order that the conditions of their isolation infringed the provision, since this could not be established on the evidence before the court.92 Accordingly, the Court granted an order authorising the respondents’ admission to the health facility and directed that they were to remain isolated there until ‘they have fulfilled the criteria for negative sputum culture conversion for XDR tuberculosis for a period of three consecutive months’.93 If necessary, the sheriff was authorised to enlist the assistance of the South African Police Services in enforcing this order.94 While it has been welcomed by at least one commentator,95 the Goliath decision presents significant cause for concern. The Court approached the balancing exercise from a starting point that favoured upholding public health, rather than individual rights. Indeed, once it accepted the importance and international legitimacy of the public health purpose behind the isolation practices of the provincial health authority, it basically neglected to conduct a human rights impact analysis at all. In the process, it failed to adhere to the approach laid down by the Constitutional Court for the application and interpretation of the right to freedom and security of the person96 and also neglected to conduct the proportionality inquiry explicitly prescribed by section 36 of the Constitution. Instead, it upheld the limitation of the respondents’ rights solely on the basis of the importance of the purpose of the limitation, without inquiring as to whether this purpose was served by the isolation practices in question or whether it could have been achieved through less restrictive means.97 This brings to mind Meyerson’s warning that, unless the public interest/ individual rights balance is at the outset explicitly skewed towards upholding individual rights, courts will lightly tend to sacrifice them in the face of weighty public concerns.98 91 92 93 94 95 96 97 98 Paras 23-8. Paras 34-41. Para 43.1(a), (c). Para 43.1(b). Carstens (n 75 above) 423-427, 429. In De Lange (n 44 above). See notes 44-47 above and accompanying text, as well as Pieterse & Hassim (n 3 above) 235-240. Pieterse & Hassim (n 3 above) 235, 241. See note 13 above and accompanying text. Rights as restraints?: Balancing individual liberties and public health 173 Equally disconcerting is the Goliath court’s preparedness to jettison the legality principle in order to enable health authorities to deal with the XDR-TB crisis. The finding that isolation constituted a ‘health service’ and could thus be authorised in terms of section 7 of the National Health Act – which provides for instances where health services may be provided without patients’ informed consent – is simply not reconcilable with the purpose of the provision, which is narrowly focused on the provision of medical treatment.99 In truth, while several other provisions in the National Health Act could be read to provide residual authority for isolation, none were specific enough to satisfy the dictates of the legality principle in this context, in the absence of detailed regulations that could substantively guide decisions to isolate as well as their implementation.100 In effect, the court in Goliath was moved by the scale and urgency of the XDR-TB crisis to authorise the respondents' isolation in terms of draft regulations, as well as statutory provisions that did not strictly apply to their situation. This sets a dangerous precedent and compellingly illustrates the need for a detailed legal and policy framework that protects the rights of patients against overzealous public responses to threats of disease. Finally, the Goliath judgment worryingly displays the tendency, also evidenced in much societal discourse around public health threats, to locate responsibility for the spread of disease in infected individuals themselves. Instead of considering the structural causes for the XDR-TB epidemic in South Africa and engaging with the health system’s multiple failures to address it at community level, the court depicts the conduct of the respondents – not complying adequately with their treatment regimes, resisting isolation, behaving in an unruly and disrespectful manner towards hospital staff – as the source of the public health threat and, accordingly, as justification for their isolation. Adila Hassim and I have criticised this aspect of the judgment as follows: These passages firstly depict isolation as a form of punishment for abhorrent behaviour and secondly locate the cause of the respondents’ XDR-TB infection in their own conduct. This is not only inaccurate (the respondents have not been convicted of any criminal offense and are therefore not deserving of punishment, and XDR-TB is not only spread through deliberate non-adherence to treatment but also through person-to-person transmission) but displays a severe lack of sensitivity to the extremely trying circumstances in which XDR-TB patients find themselves. More perniciously, these dicta serve to shift the blame for the respondents’ illness and the responsibility for the containment of the epidemic onto the respondents themselves, thus 99 Nienaber (n 79 above) 664-667; Pieterse & Hassim (n 3 above) 243. Cf Carstens (n 75 above) 428. 100 Pieterse & Hassim (n 3 above) 243-244. This applies both to sec 9 of the National Health Act, which stipulates procedures for the admission of patients to health facilities without their informed consent, and to sec 25(2)(w) of the Act, which grants provincial MEC’s for Health the power to ‘provide services for the management, prevention and control of communicable and non-communicable diseases’. 174 Chapter 6 denying the complicity of the state in the creation of the epidemic and absolving broader society from shouldering its consequences. This is patently unfair, incompatible with a human rights approach to health and clearly contributes to the further marginalization and stigmatization of XDR-TB patients.101 Overall, the Goliath judgment is a sober reminder that the existence of a constitutionally prescribed human rights framework means little if not accompanied by institutional willingness to stay true to its principles. Courts are clearly as prone to being swept along by public panic over the treat of disease as are health officials and policy makers. This underlines the need for a predetermined, context specific, rights-based legal framework for responding to public health threats that guides both the form and content of public health responses and the manner in which they are reviewed. 6.5 Conclusion In an era where the threat of new, dangerous and contagious diseases is ever-increasing, the importance of responsive and effective public health measures cannot be over-emphasised. However, history has shown that, if left unchecked, public health powers can easily become ‘instruments of oppression and stigmatisation’.102 Public health laws and policies need to be recast, not only in order to respond effectively to emerging health threats in a globalised world, but also to ensure that individual rights remain protected in the process. This chapter sought to illuminate the extent and content of the human rights responsibilities that rest on governments in this context. It has shown the need for reconciling public health interests and individual rights by way of a structured inquiry that is weighted in favour of individual rights and has engaged with the suggested content of such an inquiry. It then showed how the constitutional guarantee of civil and political rights as well as socio-economic rights lends substance to public health efforts and discussed the impact of individual civil and socio-economic rights on public health measures. While this impact is significant, at least in South Africa, the chapter has also illustrated that the enforcement of individual rights in a context of public fear remains problematic. It is important to keep in mind that restrictive public health practices inevitably require of individuals to sacrifice their own interests, often at significant personal cost, in order to protect the welfare of a society that 101 Pieterse & Hassim (n 3 above) 245. See also London (n 4 above) 12, 16-17; Pieterse (n 5 above) 556, 568, 572; Pieterse (n 14 above) 73. 102 Ngwena (n 37 above) 304. Rights as restraints?: Balancing individual liberties and public health 175 was complicit in the creation of the health threat in question.103 As a minimum, society owes those individuals an effort to restrict their basic rights as little as is possible in the circumstances. Rather than to ‘impose community’ by way of coercive measures that ‘demand and enforce individuals’ responsibilities to the community', public health measures should seek to ‘express community’ by ‘extending solidarity to its individual members’ through respecting, protecting, promoting and fulfilling their basic rights.104 Moreover, health system strengthening, rather than individual scapegoating, should be the key response to public health threats.105 Respect for basic human rights in the course of public health efforts enhances trust in the health system and encourages voluntary co-operation with public health measures which, especially in cases of sudden and urgent threats or emergencies, is integral to their success.106 Authorities cannot therefore afford not to take individual rights seriously when striving to protect society from the threat of disease. 103 Pieterse (n 14 above) 73; Pieterse & Hassim (n 3 above) 245; Singh et al (n 76 above) 23. 104 Childress & Bernheim (n 6 above) 1208. 105 See Pieterse (n 14 above) 74. 106 Gostin & Lazzarini (n 18 above) 50; Gostin et al (n 2 above) 120-121; Parmet (n 49 above) 99-100; YA Vawda & BK Baker ‘Achieving social justice in the human rights/ intellectual property debate: Realising the goal of access to medicines’ (2013) 13 African Human Rights Law Journal 55 60. 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