An Analysis of the Successes, Challenges, and Opportunities for
Transcription
An Analysis of the Successes, Challenges, and Opportunities for
Alabama State Report alabama Successes, Challenges, and Opportunities for Improving Healthcare Access An Analysis of the H E A LT H L A W A N D P O L I C Y C L I N I C O F H A R VA R D L A W S C H O O L A N D T H E T R E AT M E N T A C C E S S E X PA N S I O N P R O J E C T Prepared by: Carmel Shachar, Robert Greenwald, and Amy Rosenberg State Report | ALABAMA contents FOREWORD . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 ACKNOWLEDGMENTS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 PART I: INTRODUCTION . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7 PART II: PROFILE OF ALABAMA . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 1.Overview of the HIV/AIDS Epidemic in Alabama . . . . . . . . . . . . . . . . . . . . . 10 Epidemiological information . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 Number of AIDS and HIV cases . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 Demographics . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 Reported exposure categories . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11 Geographic distribution . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12 Funding . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12 2.State Economic Profile . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13 3.State Demographic Profile . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14 4.Government Structure and Constitution . . . . . . . . . . . . . . . . . . . . . . . . . 15 5.General Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16 Health insurance coverage . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16 Death rates and causes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16 Health status and behaviors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17 Healthcare facilities and providers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 HIV testing . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 Substance abuse and mental health facilities . . . . . . . . . . . . . . . . . . . . . . . 19 6.Public Health Programs Serving HIV-positive Individuals . . . . . . . . . . . . . . . . 19 Medicaid . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 Funding, expenditures, enrollment . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 Eligibility and programs . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20 Covered services and limits . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 22 Medicare . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 22 State Children’s Health Insurance Program (SCHIP) . . . . . . . . . . . . . . . . . . . . 23 alabama Ryan White Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 24 AIDS Drug Assistance Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25 An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 1 State Report | ALABAMA contents 7. Other HIV/AIDS-related Laws and Policies . . . . . . . . . . . . . . . . . . . . . . . 26 8.Other Programs Serving People With HIV/AIDS . . . . . . . . . . . . . . . . . . . . 26 PART III: SUCCESSES, CHALLENGES, AND OPPORTUNITIES . . . . . . . . . . . . . . . . . . . . 31 1.Medicaid in Alabama . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31 Challenges . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31 Opportunities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 33 Raise Medicaid income standard/create“medically needy” eligibility category . . . . . 33 Raise Medicaid reimbursement rates . . . . . . . . . . . . . . . . . . . . . . . . . . 33 Use presumptive eligibility/HIV waiver . . . . . . . . . . . . . . . . . . . . . . . . . 33 Improve Medicaid benefits package and make benefits easier to use . . . . . . . . . . 34 2.Provider Shortages in Alabama . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 34 Challenges . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 34 Opportunities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 36 Raise Medicaid reimbursement rates . . . . . . . . . . . . . . . . . . . . . . . . . . 36 Offer clinicians incentives for rural practice . . . . . . . . . . . . . . . . . . . . . . . 36 Expand the scope of practice for NPs and PAs . . . . . . . . . . . . . . . . . . . . . 37 Increase reimbursement rates for NP and PA services . . . . . . . . . . . . . . . . . 39 3.State Revenue and Spending Issues . . . . . . . . . . . . . . . . . . . . . . . . . . . 41 Challenges . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 41 Opportunities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 42 4.HIV and Segregation in Prisons . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 43 Past successes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 43 Challenges . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 44 Opportunities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 45 Increase collaboration among state agencies and community organizations . . . . . . 45 Provide ADOC with more medical and public health information . . . . . . . . . . . . 46 Build broader coalitions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 46 Explore possibility of a lawsuit . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 46 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 2 State Report | ALABAMA contents 5.Lack of Antidiscrimination Laws for People Living With HIV/AIDS . . . . . . . . . . 46 Challenges . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 46 Opportunities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 47 Educate providers and consumers about federal antidiscrimination law protections . . . 47 Explore filing state legislation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 47 6.ADAP . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 48 Past successes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 48 Challenges . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 48 Opportunities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 49 Raise income eligibility limit . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 49 Address Medicare Part D coverage gaps . . . . . . . . . . . . . . . . . . . . . . . . 49 7.State Health Officer Appointment . . . . . . . . . . . . . . . . . . . . . . . . . . . . 50 Challenges . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 50 Opportunities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 50 PART IV: CONCLUSION . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 51 APPENDIX A: Alabama HIV/AIDS Epidemiological Information . . . . . . . . . . . . . . . . . . 52 APPENDIX B: Alabama HIV/AIDS Cases by Public Health Area and County . . . . . . . . . . . 56 APPENDIX C: Map of Alabama Counties . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 62 APPENDIX D: Alabama Medicaid Covered/Noncovered Services . . . . . . . . . . . . . . . . . 63 APPENDIX E: 2009 Federal Poverty Guidelines . . . . . . . . . . . . . . . . . . . . . . . . . . . 68 NOTES AND REFERENCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 69 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 3 State Report | ALABAMA foreword It goes without saying that access to good quality, comprehensive healthcare is critical for people living with HIV/AIDS. Advocating effectively for improved healthcare access requires understanding the underlying legal and policy landscape of a state, the state’s fiscal and cultural environment, and existing barriers to healthcare access. The State Healthcare Access Research Project (SHARP) is researching and analyzing this information, and examining states’ capacities to meet the care and treatment needs of people living with HIV/AIDS. Working together with community partners in SHARP states, the project is identifying past successes, current challenges, and future opportunities to improve access to care and services for people living with HIV/AIDS. Collaboration with community partners is integral to the SHARP process. We have met in-state with people living with HIV/AIDS, community-based AIDS services providers, healthcare providers, state and federal government officials, and other researchers and advocates. These community partners have shared their opinions and insights about the successes and challenges faced by people living with HIV/AIDS as they seek care. They have also shared their perspectives on the political, cultural, and fiscal factors unique to their state. Our goal is for the SHARP reports to be informative and useful. It is our hope and intention that they will become a framework for future efforts to expand healthcare access— tools that can be used as part of a broader strategy to bring healthcare to more people living with HIV/AIDS. SHARP is being conducted by the Health Law Clinic of Harvard Law School and the Treatment Access Expansion Project (TAEP) with support from Bristol-Myers Squibb. The Health Law Clinic has provided legal services to low- and moderateincome people living with HIV/AIDS for 20 years, and actively participates in HIV healthcare access advocacy efforts. TAEP is a national organization focused exclusively on HIV healthcare access advocacy. The mission of both organizations is to help bring good quality, comprehensive healthcare to more people living with HIV/AIDS. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 4 State Report | ALABAMA acknowledgments We gratefully acknowledge the contributions of the following individuals, who shared their knowledge, experience, perspectives, and opinions with us in the development of this report. • Amy Bark, AIDS Alabama • Frenshai Bonner, Peer Mentor • Cynthia Boykin, Peer Mentor • Bridget Byrd, Alabama Department of Public Health • William Chastang, Franklin Primary Health Center • Dayna Cook-Heard, UAB, The Family Clinic • Richard Hailey, Peer Mentor • Kathie Hiers, AIDS Alabama • Marla Hinson, UAB, The Family Clinic • Julie Hope, Health Services Center • Catina James, Alabama Department of Public Health • Vallarie Jones, Franklin Primary Health Center • W. Randy Jones, Alabama Department of Public Health • Sharon Jordan, Alabama Department of Public Health • Kelli Lasseter, Health Services Center • Gerald Lavender, AIDS Alabama • Bill Manning, formerly Health Services Center • Malcolm Marler, UAB, 1917 Clinic • Mary Elizabeth Marr, AIDS Action Coalition • Michael Mugavero, UAB, 1917 Clinic alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 5 State Report | ALABAMA acknowledgments • Mike Murphree, Montgomery AIDS Outreach • Karen Musgrove, Birmingham AIDS Outreach • Patrick Packer, Southern AIDS Coalition • Elana Parker, Alabama Departments of Correction and Public Health • DaNita Perry, Homeward Bound • Karen Phillips, Health Services Center • Mel Prince, Selma AIR • James Raper, UAB, 1917 Clinic • Delia Reynolds, Alabama Department of Public Health • Martha Robinson, Peer Mentor • Randy Russell, Healthcare Responses • Michael Saag, UAB, 1917 Clinic • Gloria Sims, Alabama Department of Public Health • Marilyn Swyers, Unity Wellness Center/East Alabama Health Services • Jackie Walker, American Civil Liberties Union National Prison Project • Stephany Washington, Homeward Bound and especially, • the Alabama residents living with HIV/AIDS who met with us and shared their experiences regarding healthcare access • Rachel Frazier, Matthew Siegler, and Peter Chang of Harvard Law School, for research and writing assistance • Laurie Novoryta and Elise Procaccio, Discovery Chicago, for help with logistics alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 6 State Report | ALABAMA part I: introduction Alabama is a challenging state in which to live if you are a person with HIV/AIDS. It is also a challenging state in which to provide services, medical treatment, and advocacy for people living with HIV/AIDS. The South in general is at the epicenter of the current HIV epidemic in the United States with the highest rates of new infections, the most AIDS deaths, the greatest number of people living with HIV/AIDS, the largest percentages of persons with HIV who are not in care, and the fewest resources. Alabama is no exception. This report will describe some of the difficulties faced by Alabamians living with HIV/AIDS and the people who work with them, particularly with regard to accessing healthcare, as well as possible opportunities for improvement. Alabama is a relatively poor state with a large rural population, characteristics shared by many Alabamians living with HIV/AIDS. Lack of reliable, affordable transportation options, combined with the worst shortage of medical providers in the nation, pose significant obstacles to accessing both primary and HIV care. Alabama’s Medicaid program has highly restrictive eligibility criteria and a limited benefits package for those who are able to qualify. The state’s revenue and spending structure and practices mean that few state dollars go to HIV/AIDS care and services. There are barriers to justice: HIV-positive inmates live in segregated prison housing, and Alabama has no state antidiscrimination laws to protect people living with HIV/AIDS (or any other Alabamians, for that matter). The AIDS Drug Assistance Program (ADAP) has improved from years past, but remains vulnerable, especially in a recessionary economic climate. Alabama is also a politically and culturally conservative state. The mix of residents in Alabama has shifted over the last 40 years from predominantly blue-collar workers, such as steel-production laborers, to more of a white-collar workforce, such as employees in the space industry (Huntsville) and university-centered positions. In the late 1980s, the University of Alabama Birmingham became the largest employer in Birmingham, Alabama’s largest city. The migration to Alabama of highly-trained and skilled professionals has created tension between the newer arrivals and long-time Alabama residents. People who have relocated to Alabama within the last 25 years are less likely to vote in local elections for a variety of reasons, leaving the electorate not truly representative of the current mix of residents. Politicians still cater to the state’s voting population, which tends to be long-term residents who are characterized by strong convictions to religion-based politics. During the 2008 presidential election, Alabamians cast 35% of their votes for President Obama, the second lowest national percentage (only Oklahoma had a lower percentage of votes). alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 7 State Report | ALABAMA part I: introduction Alabama’s cultural conservatism has implications for health education and public health in the state. Health education is seen as a responsibility belonging to the family, rather than the public schools, even though teenage pregnancy, chlamydia, gonorrhea, and syphilis rates remain among the highest in the nation. There are no statewide requirements for health education—Mobile, for example, has a separate board of education governing curriculum and programs in its public education system. Alabama’s state health officer position is the only one in the nation to be de facto selected by the private state medical association. The state health officer is not included in the governor-appointed cabinet. This separate role restricts the ability of the state’s administration to streamline and implement public health interventions. These separate and disconnected approaches to health and education represent the tension of a deeply entrenched cultural belief that self-rule is better than seeking to accomplish the good for all. Stigma is a multifaceted and nuanced phenomenon, but stigma in Alabama is certainly partly due to the association of HIV with behaviors that many consider shameful, such as injection drug use and male-to-male sex. Many Alabamians hold strong, traditional religious beliefs, and some churches have contributed to HIV-related stigma by preaching that AIDS is a curse from God for sinful ways. Stigma also relates to Alabama’s complex history of race relations, as HIV disproportionately impacts Alabama’s African American residents. African Americans living with HIV in Alabama may also experience discrimination from within their own communities (eg, churches) and may be understandably hesitant to engage with a white-dominated healthcare system in the long shadow of Tuskegee. Notwithstanding the many social, cultural, political, and economic challenges, there are some significant successes in Alabama HIV/AIDS care and services. Alabama currently has more HIV housing than Georgia or Florida, 2 states with much larger populations and more resources. The federal Housing Opportunities for Persons with AIDS (HOPWA) program provided $1,679,000 in 2007 for Alabama projects, including rental assistance and housing in all 67 counties. Recently the Department of Housing and Urban Development awarded a Hobson City clinic nearly $1 million for HIV housing. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 8 State Report | ALABAMA part I: introduction Alabama is one of only 11 states to have a targeted case management program for people living with AIDS and is virtually unique in the fact that Medicaid funds the program. Despite the limitations of Alabama’s Medicaid program, the state does have a Medicaid waiver program to provide in-home care for people with AIDS who would otherwise be institutionalized. Advocates have made significant progress in recent years in improving conditions for HIV-positive inmates, who are now allowed to participate in a greater range of activities, including work-release programs (as of August 2009). There is some collaboration among the Alabama Department of Corrections (ADOC), Department of Public Health, and community-based organizations, providing a foundation on which to build future efforts. Perhaps the biggest success is the commitment, perseverance, and resourcefulness of Alabama’s HIV/AIDS services providers and advocates. They are outstanding in their dedication to their clients and their collaboration and cooperation with each other. Although they have very limited means, everyone is determined to stretch their capacities to the fullest. Providers work diligently and creatively to maximize the benefits achieved for clients, and clients understand and appreciate their providers’ efforts. In this area, Alabama has lessons to offer to more well-resourced states. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 9 State Report | ALABAMA part II: profile of alabama OVERVIEW OF THE HIV/AIDS EPIDEMIC IN ALABAMA Epidemiological information (see Appendix A for these data in table format) Number of AIDS and HIV cases Through 2007, Alabama reported 9,091 cumulative AIDS cases, which was 1% of the total cumulative AIDS cases in the US.1 Alabama reported 6,430 cumulative cases of HIV infection at the end of 2007, comprising 2% of the total cumulative reported HIV cases in the US.2 There were 5,740 persons estimated to be living with HIV and 4,046 estimated to be living with AIDS in Alabama at the end of 2007.3 The estimated rates, per 100,000 population, of persons living with HIV and AIDS in Alabama were 149.4 (HIV) and 105.4 (AIDS).4 In 2007, Alabama reported 391 AIDS cases and had an annual AIDS case rate of 8.4 cases per 100,000 people, compared to 12.4 for the US as a whole.5 Through 2007, there were 5,034 reported deaths among persons with AIDS in Alabama.6 The Alabama Department of Public Health (ADPH) reports that there were 900 new cases of HIV/AIDS in 2007 and 839 new HIV/AIDS cases in 2008. As of March 31, 2009, the cumulative HIV/AIDS case total was 16,377. These numbers will likely change as reporting of 2008 data becomes more complete.7 Demographics8 The incidence of HIV/AIDS is not evenly distributed among different racial, ethnic, or gender groups. According to ADPH, Blacks accounted for more than 70% of new HIV/AIDS cases reported in 2008 (591 out of 839), and represent nearly 64% of the cumulative HIV/AIDS cases through March 31, 2009 (10,413 out of 16,377). This rate is significantly higher than that for Whites, which was 22.5% of new 2008 cases, and 33.4% of cumulative cases. Hispanics made up 3.6% of 2008 HIV/AIDS cases, and 1.7% of cumulative cases. Cumulatively, males make up 74.5% of total HIV/AIDS cases and females comprise 25.5%. In 2008, however, males accounted for 71% of new HIV/ AIDS cases; females accounted for 29%, indicating that the epidemic is now increasing faster among women. The most common age at diagnosis of HIV or AIDS is 25-34 years, with nearly 35% of cumulative cases in Alabama diagnosed when the patient was between those ages. For 2008, 25-34-year-olds made up 26.6% of new cases. New cases appear to be alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 10 State Report | ALABAMA part II: profile of alabama increasing fastest among 13-24-year-olds, who accounted for 21% of new 2008 cases (up from less than 17% of 2007 cases), while making up 13.5% of cumulative cases. The 35-44-year-old group made up 24% of 2008 cases, and almost 31% of cumulative cases. Older Alabama residents account for a larger percentage of recent HIV/AIDS diagnoses. People aged 45-49 made up about 12% of 2008 cases vs 9% of cumulative cases; people aged 50+ accounted for 16% of 2008 cases and 11% of cumulative cases. Pediatric (age <13) HIV/AIDS cases comprised 0.4% of 2008 cases and 0.8% of cumulative cases. Reported exposure categories9 The 2 largest exposure categories for newly-reported HIV/AIDS cases in Alabama are men who have sex with men (MSM) and heterosexuals. In 2005, according to ADPH, 37.6% of new cases of HIV or AIDS reported MSM as the primary risk factor. In 2006, 34.8% of new cases were reported as MSM. In 2007, 38.6% of new cases were reported as MSM. There have been 6,717 cumulative HIV/AIDS cases among MSM in Alabama as of March 31, 2009, and MSMs make up 41.4% of cumulative HIV/AIDS cases. Exposure through heterosexual sex has been increasing as a percentage of new HIV/AIDS cases. Heterosexuals made up 25.4% of new cases in 2005, 38.9% in 2006, and 34.3% in 2007. Part of the large jump in cases between 2005 and 2006 is due to the reclassification of women reported with no known risk factor to the “heterosexual exposure” category. As of the end of March 2009, 4,626 heterosexual HIV/AIDS cases had been reported, comprising 28.5% of cumulative cases. Other exposure categories include injection drug use (IDU), MSM and IDU, and receipt of blood products/transfusions. Through March 31, 2009, there were 1,805 cumulative IDU cases reported (11.1% of total cases). MSM/IDU totaled 910 cases as of March 2009 (5.6% of cumulative cases). Transmission through blood products remained a relatively low risk factor, with 0.75% of cumulative cases reported with this risk factor. There are also cases with an exposure category of “risk not reported or identified/ other”—these cases totaled 2,050 and accounted for 12.6% of cumulative cases as of the end of March 2009. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 11 State Report | ALABAMA part II: profile of alabama Geographic distribution Alabama is divided into 11 public health areas (PHAs). Almost one-third of HIV-positive Alabamians live in Jefferson County, which includes much of the city of Birmingham. A chart showing HIV/AIDS cases by PHA and county appears in Appendix B. According to the Centers for Disease Control and Prevention (CDC), 20% of AIDS cases first reported in Alabama in 2006 occurred among residents of rural areas (areas with less than 50,000 people).10 This is a significantly higher percentage than for the United States as a whole, where 7% of 2006 AIDS cases were rural, and also a higher rate than the South as a region, where rural cases accounted for 10% of 2006 AIDS cases. The CDC estimated that, at the end of 2006, 16% of Alabamians living with HIV (who had not yet progressed to an AIDS diagnosis) were living in rural areas, and 19% of Alabamians living with AIDS lived in rural areas.11 Having a relatively high proportion of rural HIV/AIDS cases can present extra challenges in access to care and delivery of services, as discussed further in Part III of this report. Funding12 The total HIV/AIDS federal funding in fiscal year 2007 (FY07) for Alabama was $33,896,136, which was about 1.2% of the $2,956,310,950 total FY07 federal HIV/AIDS funding. Of Southern states (including Arkansas, Florida, Georgia, Louisiana, Mississippi, North Carolina, and South Carolina), only Mississippi ($26.1M) and Arkansas ($13.1M) received less federal HIV/AIDS funding in FY07. The following table shows Alabama’s FY07 federal funding for HIV/AIDS: Source Amount (in millions) Ryan White $26.6 CDC $3.8 (includes $2.1 for prevention) Substance Abuse and Mental Health Services Administration (SAMHSA) $1.8 (all for substance abuse prevention and treatment) Housing Opportunities for Persons with AIDS (HOPWA) $1.7 The Office of Minority Health did not send funding to Alabama, despite disbursing $11.3M nationally in FY07. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 12 State Report | ALABAMA part II: profile of alabama STATE ECONOMIC PROFILE Alabama has a gross domestic product (GDP) of $165,796 million (in 2007 dollars) as of 2007. Alabama contributes 1.2% of total US GDP, a figure that has held steady from 2004 onward. The Southeast region overall contributes 22.5% of the US GDP.13 The largest employer in Alabama is the University of Alabama Birmingham. As of 2006, there were 423,550 goods-producing jobs, 160,720 government jobs, and 1,545,130 service jobs. The most common jobs in Alabama are registered nurses, team assemblers, customer-service representatives, and elementary school teachers.14 Alabama has realized continual growth in its GDP, although this growth has slowed in recent years, as in most other states. From 2006 to 2007, the GDP increased 1.8%. This is a slight decline from 2005-2006, when the GDP grew 2.0%, and a continued decrease from the growth in 2004-2005 (3.2%) and 2003-2004 (5.2%). Alabama is ranked 27th for GDP growth among states in 2007. Retail trade, real estate rental and leasing, and durable goods manufacturing contributed 0.48, 0.42, and 0.40 positive percent change to the GDP in 2006-2007. Construction, nondurable goods manufacturing, and finance and insurance were the biggest drain on GDP growth, contributing -0.49, -0.15, and -0.14% to change in GDP in 2006-2007.15 Alabama is one of the poorer states in the nation. It ranked 42nd in per capita personal income in 2007 ($32,401, or 84% of the national average), although this was a 5% increase from 2006.16 The percent of persons living below the poverty line was 16.1% in 2004 as compared with the national rate of 12.7%.17 In 2007, 4% of Alabama residents (165,400 people) received Supplemental Security Income (SSI), a federal income support program for low-income elderly, blind, and disabled individuals. Nationally, 2% of the population got SSI in 2007. Alabama had a higher percentage of individuals under age 65 receiving SSI (about 80% of SSI recipients, compared with 72% nationally), indicating that Alabama had more people determined to be disabled than the national average.18 Alabama does fairly well with unemployment. In December 2007, the seasonally adjusted unemployment rate was 3.7%, as compared with 5.0% for the nation. Preliminary data for December 2008 show 6.7% unemployment in Alabama vs 7.2% nationally.19 Alabama’s agricultural exports were valued at $615.5M in 2007. Alabama is the third largest state exporter of peanuts and products, with 2007 peanut exports valued at $27.2M. Alabama is the fourth largest state exporter of poultry and products, with the value of its poultry exports for 2007 estimated at $309.9M.20 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 13 State Report | ALABAMA part II: profile of alabama STATE DEMOGRAPHIC PROFILE21 According to the US Census Bureau, Alabama had an estimated total population of 4,661,900 as of July 1, 2008. The median age was 37.5 years, slightly above the national median (36.8). Seventy-one percent of the population identified as White in 2008, and 26.4% as Black.22 Persons of Hispanic or Latino origin comprise 2.9% of the population, Asians comprise 1%, and American Indian and Alaska Native persons make up 0.5% (the numbers add up to more than 100% because a single person can be reported as more than one race/ethnicity). This compares with the national average of 79.8% White, 15.4% Hispanic, and 12.8% Black. Thus, Alabama has a significantly higher percentage of Blacks than most of the country, and fewer Hispanics. Alabama has fewer noncitizens (3% of the population) than the national average (7%).23 According to the 2000 US Census, 55% of Alabama’s population live in urban areas, with the remaining 45% living in rural locations. Nationally, only about 17% of the population live in nonmetropolitan areas. Alabama’s poverty rate and unemployment rate are higher in rural areas. The poverty rate of rural areas in Alabama is 18.8%, as compared with the urban area’s rate of 15.8%.24 From 2006 to 2007, earnings per job dropped 0.5% in rural areas and decreased 1.6% in urban areas.25 Both areas saw an increase in per capita income from 2006 to 2007 (3.7% for rural areas and 4.3% for urban areas).26 The unemployment rate in 2008 was 6% in rural areas and 4.7% in urban areas.27 Part of the economic and employment disparity between urban and rural areas in Alabama may be attributable to the difference in education levels. In 2000, 30.7% of people in rural areas of Alabama did not complete high school, whereas 22.2% of people in urban areas did not complete high school.28 In 2000, only 12.8% of people in rural areas completed college vs 21.7% in urban areas.29 Alabama lagged behind the national rates for education. In 2000, 75.3% of people in Alabama were high school graduates as compared with the national rate of 80.4%. Nineteen percent of people in Alabama had a bachelor’s degree or higher, as compared with 24.4% of people nationwide.30 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 14 State Report | ALABAMA part II: profile of alabama GOVERNMENT STRUCTURE AND CONSTITUTION Alabama’s executive branch consists of the following elected officials: governor, lieutenant governor, attorney general, state auditor, secretary of state, state treasurer, superintendent of education, commissioner of agriculture and industries, and a sheriff for each county.31 Governor Bob Riley (R), who was elected in 2002 and reelected in 2006, has a 25-member cabinet.32 Of note, the chief public health officer for Alabama is not part of the governor’s cabinet. The Alabama legislature is composed of a 105-member House of Representatives and a 35-member Senate. A regular legislative session is made up of 30 “legislative” or “meeting” days that must be completed within 105 calendar days. There are usually 2 legislative days per week, with other days used for committee meetings and travel. For 2009, the Alabama legislative session convened on February 3 and adjourned on May 15. Alabama currently operates under the Constitution of 1901, the sixth constitution in the state’s history. Alabama’s constitution weighs in at 357,157 words (40 times longer than the US Constitution) and is believed to be the longest active constitution in the world. The Constitution of 1901 centralizes government power in the state legislature, rather than delegating functions to local governmental authorities. In practice, this means that local issues must be dealt with by state legislators, often through constitutional amendments. Most of the Constitution of 1901’s length is due to its nearly 800 amendments, which often address issues in single counties (eg, mosquito control taxes, bingo, dead farm animals) or are amendments of other amendments. Other criticisms of the Constitution of 1901 are that it is racist, discriminatory, and outdated.33 There are efforts within Alabama to reform the state constitution, although there is not necessarily agreement about the best way to accomplish this. Alabama Citizens for Constitutional Reform (ACCR) is a grassroots, nonprofit group that supports letting Alabamians vote on whether to call a constitutional convention to rewrite the constitution. Joint resolutions filed in 2009 in both the House and Senate (HJR 91/SJR 20) that would have allowed such a vote did not pass.34 Some Alabama voters filed a lawsuit in February 2009 against state officials, alleging that the 1901 constitution was never legally ratified because of extensive voting fraud, and that officials violated voter rights by failing to ensure that the constitution was valid. The plaintiffs are seeking either a new vote on the 1901 constitution or a new constitutional convention.35 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 15 State Report | ALABAMA part II: profile of alabama GENERAL HEALTH Health insurance coverage36 Eighty-six percent of people living in Alabama had health insurance in 2006-2007, 1% better than the national rate. In 2006-2007, 55% of people in Alabama got their health insurance through their employer. Individual health insurance coverage accounted for 4%. Medicaid enrollees comprised 13% of the population, while Medicare beneficiaries made up 14%. Among poor adults (under 100% of the federal poverty level [FPL]), 27% received Medicaid coverage in 2006-2007, but 44% were uninsured. Eight percent of all Alabama children in 2007 were uninsured, better than the national rate of 11%. However, for children living in poverty, 18% had no health insurance (slightly less than the national rate of 20%). There are several obstacles for people with HIV/AIDS seeking private insurance in Alabama. Most Alabamians with private health insurance received coverage through an employer group policy. But HIV-affected individuals have high rates of unemployment, so this option may not be available to them. Individual market policies may also be difficult to obtain—private insurers can turn anyone down for individual coverage because there is no guaranteed issue in Alabama.37 Despite not being a mandated benefit, private insurers generally do cover HIV/AIDS care in their policies.38 However, it is unclear whether insurers are required to renew individual policies. If an HIV-affected individual receives insurance through a large employer, the federal Health Insurance Portability and Accountability Act (HIPAA) offers more protection. Under HIPAA, full policy exclusions are disallowed and riders are limited to 12 months. Death rates and causes The death rate in Alabama was 952 deaths per 100,000 people in 2006, as compared with the national rate of 776 deaths per 100,000 people. The death rate for Black people was 1,132 deaths per 100,000 as compared with 935 deaths per 100,000 people for White people in Alabama in 2005. Alabama’s birth rate was 14 births per 1,000 people in 2006, the same as the national rate.39 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 16 State Report | ALABAMA part II: profile of alabama In 2007, the leading causes of death were, in ranked order: 1 Heart disease 2 Malignant neoplasms 3 Cerebrovascular disease 4 Chronic lower respiratory disease 5 Accidents 6 Alzheimer’s disease 7 Diabetes mellitus 8 Nephritis, nephrotic syndrome, or nephrosis 9 Influenza and pneumonia 10 Septicemia40 Although the incidence rate of cancer is lower in Alabama than nationwide (451 cases per 100,000 in 2004 as compared with 458 per 100,000), the rate of cancer deaths is higher in Alabama than it is nationally (202 deaths per 100,000 in 2005 compared with 184 deaths per 100,000). The diabetes death rate in Alabama in 2005 was 29 deaths per 100,000 people; nationally it was 25 per 100,000 people. The number of deaths due to heart disease in Alabama in 2006 was 253 deaths per 100,000, as compared with the national rate of 200 deaths per 100,000.41 Health status and behaviors In 2007, 22% of adults in Alabama smoked, compared with 19% nationally. Sixty-four percent of adults in 2007 were overweight or obese, more than the 60% for the US overall. In 2007, 33% of Alabama adults reported poor mental health, the same as those numbers reported nationally. Alabama reported significantly higher rates of sexually transmitted infections than US rates. In 2006, the rates of reported chlamydia cases per 100,000 people were 503 for Alabama and 348 for the US. The rates of reported gonorrhea cases were 234 for Alabama and 121 cases per 100,000 people for the US. The number of reported syphilis cases per 100,000 in 2006 was 20 for Alabama and 13 for the US.42 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 17 State Report | ALABAMA part II: profile of alabama Healthcare facilities and providers The number and geographic distribution of hospitals in Alabama is problematic. According to the Alabama Department of Public Health, Alabama has 132 hospitals: 17 of those are in Jefferson County, 9 are in Mobile County, and Montgomery and Tuscaloosa counties have 7 hospitals each. In contrast, 34 counties have only 1 hospital and 2 counties have no hospitals. There are 130 community health centers, with the majority of these located in Birmingham, Mobile, and Huntsville. Central and far northern sections of Alabama tend to have stronger healthcare networks than the southeastern section of the state.43 The Health Resources and Services Administration (HRSA) classified Jefferson, Madison, Elmore, Escambia, Mobile, Autauga, Baldwin, and Barbour counties as having health professional shortages. There are 11,352 doctors in Alabama as of 2007. Of the 88 infectious disease doctors in the state, the vast majority are in Birmingham and Mobile. There were 41,560 registered nurses in 2008 (down from 42,180 in 2007), or 891 nurses per 100,000 people, more than the national average of 836 nurses per 100,000 people.44 The projected number of physician assistants in clinical practice as of the end of 2008 is 485, or 10 per 100,000 population (compared with 24 per 100,000 population nationally).45 All 67 counties have a health department. According to the Department of Public Health, public health services in Alabama are primarily delivered through county health departments. In addition, there are 64 rural health clinics. The Alabama Primary Health Care Association has HIV/AIDS programs in DeKalb, Cherokee, Calhoun, Talladega, Tallapoosa, and Cambers counties.46 There are no sterile syringe exchange programs in Alabama.47 HIV testing There are 106 HIV/AIDS testing sites in Alabama, with the testing being conducted by the county health departments. Other testing sites run by hospitals, clinics, and community-based organizations are located in Birmingham, Florence, Hobson City, Tuscaloosa, Huntsville, Gadsden, Tuskegee, Montgomery, Evergreen, Mobile, Auburn, Phenix City, and Selma.48 ADPH reports that 19,304 people were tested for HIV between January and March 2005.49 In 2001, 47% of people in Alabama aged 18-64 reported ever having been tested for HIV, 1% higher than the national rate. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 18 State Report | ALABAMA part II: profile of alabama The only option for HIV testing in Alabama is confidential, as anonymous testing is not permitted. Name-based reporting has been required as of January 1988. There are limited regulations in effect as to who can offer HIV testing and counseling. ADPH has requirements, including licensure requirements, for providers participating in DPHfunded testing programs (those providers receiving test kits from ADPH).50 Alabama law requires voluntary, signed, informed consent for HIV testing, although this consent can be implied in certain circumstances, and a general consent form that mentions HIV may be used.51 In line with CDC recommendations, Alabama has an opt-out policy for testing pregnant women, meaning that pregnant women will be tested for HIV unless they decline or are already known to be HIV-positive.52 Substance abuse and mental health facilities There are 83 dedicated substance abuse facilities in Alabama. Forty-three cities have facilities, with Birmingham, Mobile, and Montgomery having the greatest concentration of facilities. Twenty hospitals have either an inpatient or outpatient substance abuse program in 12 counties. There are 2 dedicated mental health centers and 12 facilities providing combined mental health and substance abuse services.53 PUBLIC HEALTH PROGRAMS SERVING HIV-POSITIVE INDIVIDUALS There are a variety of ways that people with HIV/AIDS in Alabama can receive health coverage and care, including Medicaid, SCHIP, Medicare, Ryan White programs, and the AIDS Drug Assistance Program. Medicaid Funding, expenditures, enrollment Alabama Medicaid is Alabama’s plan for medical assistance under Title XIX of the Social Security Act. It is operated on the basis of nondiscrimination and provider choice.54 Medicaid is funded by both federal and state contributions. The federal medical assistance percentage (FMAP) is used to calculate the federal contribution to state Medicaid programs. Alabama’s FMAP for FY10 is 68.01, meaning that for every state dollar spent on Medicaid, the federal government contributes $1.68. In FY06, total Medicaid spending in Alabama was $3,885,724,359. Seventy percent (about $2.7B) came from federal funds and 30% (about $1.2B) came from the state. For the US as a alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 19 State Report | ALABAMA part II: profile of alabama whole in FY06, 57% of Medicaid spending was federal and 43% came from the states. Fifty-five percent of FY06 Alabama Medicaid dollars were spent on acute care, 35% on long-term care, and 11% on disproportionate share hospital payments. Twenty-one percent of Alabama residents (947,900 people) were enrolled in Medicaid in FY05, just above the national average of 20%.55 Eligibility and programs Alabama Medicaid has several different programs to provide health coverage for low-income citizens. For all programs, in order to be eligible, an individual must be a US citizen or a qualified alien.56 Documentation of the requisite status is required. An individual must be an Alabama resident unless a residency agreement applies.57 Medicaid providers of services to Medicaid-eligible hurricane evacuees need to enroll as a Medicaid provider in the evacuees’ home states, such as Mississippi and Louisiana, to be reimbursed.58 To qualify for Medicaid, individuals must fit an eligibility category and must have countable income under a certain amount (the income limit is also called the income standard).59 Medicaid also has asset limits, which vary by program. Assets (also called resources) such as cars, life insurance, household goods, burial funds, and a property used as a home are not counted toward the limit.60 Alabama Medicaid programs include, among others, SSI-related Medicaid, Pregnant Women and Children (called SOBRA from the Sixth Omnibus Budget Reconciliation Act), Medicaid for Low-Income Families (MLIF), Plan First, Nursing Home, Home and Community-based Waivers, and Medicare Savings Programs, which are discussed in the following Medicare section.61 Different agencies handle Medicaid applications for the different programs. The US Social Security Administration (SSA) certifies SSI-related individuals. The Alabama Department of Human Resources certifies applicants for foster children and children who receive state or federal adoption assistance. The Alabama Medicaid Agency handles applications for all other programs. Alabama does not have a “medically needy” Medicaid program. A medically needy program allows people who are categorically eligible for Medicaid (such as the disabled) but slightly over the income limit to become eligible by “spending down” their excess income until they meet the income requirements. Most Alabama Medicaid beneficiaries are enrolled in Patient 1st, the primary care case management program (PCCM).62 Patient 1st establishes a medical provider and a medical home for enrollees. For Patient 1st participants, Medicaid will pay for medical alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 20 State Report | ALABAMA part II: profile of alabama care only if participants go through their primary care provider (PCP) first.63 For many Alabamians living with AIDS, Medicaid eligibility is associated with their receipt of federal Supplemental Security Income (SSI) disability benefits. To qualify for SSI, an individual must be over 65, blind, or disabled, and have very low income. Alabama is a Section 163 state, meaning that the state accepts the SSA determination of disability. SSA defines disability as “the inability to do any substantial gainful activity by reason of any medically determinable physical or mental impairment which can be expected to result in death or which has lasted or can be expected to last for a continuous period of not less than 12 months”—in other words, severe medical impairment(s) that prevent someone from working.64 For 2009, SSI-related Medicaid in Alabama has a countable income limit of $694 per month for an individual and $1,031 for a couple; countable resources may not exceed $2,000 for an individual and $3,000 for a couple. SOBRA Medicaid covers low-income pregnant women and children up to age 19. For pregnant women and children under 6, the income standard is 133% of FPL. In 2009, that is $1,552 for a family of 2 and $2,350 for a family of 4. Children aged 6 to 19 must have countable family income of 100% or less of FPL—$1,167 for a family of 2 and $1,767 for a family of 4.65 Medicaid for Low-income Families covers the parents or caretaker relatives of children aged 6 to 19 in extremely low-income families. The 2009 income standards for MLIF are $137 for a family of 2 and $194 for a family of 4 (about 11% of FPL). People included in families must be blood related, related by marriage, or adopted. For both SOBRA and MLIF Medicaid, certain deductions for working adults, child support, and dependent care costs can be applied to gross income to determine the net income amount.66 The Plan First Medicaid program provides family planning services to women aged 19 to 55, with income at or below 133% of FPL. Plan First participants receive family planning services only—other medical services are not covered. Family planning services include counseling, pregnancy tests, testing for HIV/AIDS and other STDs, and pap smears.67 The Breast and Cervical Cancer Program provides coverage for certain women under age 65 who have been screened through the CDC’s National Breast and Cervical Cancer Early Detection Program.68 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 21 State Report | ALABAMA part II: profile of alabama Nursing home or institutionalized Medicaid provides coverage for long-term care for certain low-income elderly or disabled beneficiaries. Alabama has several home and community-based waiver programs, which provide health coverage at home and in the community for individuals who would otherwise be eligible for institutional care. One of these is the HIV/AIDS Waiver Program, which has a total of 200 slots. Care under this program includes case management, homemaker services, personal care, respite care, skilled nursing, and companion services. Hospice care is covered, though people with HIV/AIDS have specific criteria with which to qualify.69 Covered services and limits All medical services provided under Alabama’s Medicaid program must be medically necessary and be coded, either under the Physician’s Procedural Terminology or Healthcare Common Procedure Coding. Alabama Medicaid offers mandatory (required by federal law) and optional services (see Appendix D for a list). Copayments are required for certain services, including doctor visits, clinic visits, prescription drugs, and inpatient hospital stays.70 Office visits are limited to 14 visits per year. Office visits include eye exams, psychiatric care, prenatal care, postnatal care, second opinions, consultations, and referrals. Exceptions to the 14-visit limit include emergencies, family planning, and inpatient psychiatric care for enrollees over 65 years of age. According to the Alabama Administrative Code, inpatient hospital visits are limited to 12 days per year,71 although other Alabama Medicaid Agency materials state that Medicaid pays for 16 inpatient hospital days per year.72 Exceptions to the inpatient limit include deliveries and awaiting admission to nursing homes while in certain hospitals. Alabama Medicaid does not cover preventive care, such as routine physical exams, dental care, and hearing exams and aids, for enrollees over age 21. Enrollees under 21 years of age are entitled to well-child check-ups, dental services (not orthodontia), and hearing screenings and aids. Enrollees under age 21 may also be covered for additional inpatient hospital care. Medicare Medicare is a federal health insurance program for the elderly and disabled who have worked long enough to qualify for coverage.73 As of January 2008, there were 804,351 Medicare beneficiaries in Alabama, or 17% of the population. Seventy-seven percent of Medicare beneficiaries were aged (over 65) while 23% were disabled. Nationally, 84% of Medicare beneficiaries are aged and 16% are disabled.74 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 22 State Report | ALABAMA part II: profile of alabama Some low-income Medicare beneficiaries can receive assistance from Medicaid with their Medicare premiums, deductibles, and coinsurance through Alabama Medicaid’s Medicare Savings Programs (MSPs). MSPs only provide financial assistance and not any additional medical services. Those eligible for MSPs include qualified Medicare beneficiaries (QMBs), specified low-income Medicare beneficiaries (SLMBs), and qualified individuals (QI-1s). QMBs have income below 100% of FPL and limited assets, and are enrolled in Medicare Part A. Medicaid pays Medicare premiums, deductibles, and coinsurance for QMBs and dual-eligibles (people eligible for both Medicaid and Medicare).75 SLMBs have limited assets and income between 100% and 120% of FPL. They can receive help paying Medicare Part B premiums only. QI-1s have limited assets and income between 120% and 133% of FPL. They can receive Medicare expense assistance when federal funds are available.76 Alabama Medicaid is not currently accepting QI-1 applicants.77 State Children’s Health Insurance Program (SCHIP) ALL Kids is the children’s health insurance program offered by ADPH for uninsured children under age 19. Families who make too much money to qualify for Medicaid but cannot afford private health insurance can get coverage through ALL Kids.78 To be eligible, children must meet family income requirements, be Alabama residents, US citizens or eligible immigrants, not covered by health insurance (with a 3-month waiting period if previous health insurance is voluntarily dropped), and not eligible for Medicaid. Income limits for ALL Kids range from 100% to 200% of FPL, depending on the age of the children.79 Blue Cross Blue Shield of Alabama administers ALL Kids, with care provided through a preferred provider network. Benefits include well-child check-ups and immunizations, sick-child doctor visits, prescriptions, vision and dental care, hospitalization, mental health, and substance-abuse services. Premiums range from $50 to $100 per year. Copays may apply to nonpreventive services. As of the end of January 2009, ALL Kids covered 70,770 children in Alabama.80 Another program that covers children is the Alabama Child Caring Program. It is administered by a publicly-funded nonprofit foundation. This program covers children under the age of 19 whose family gross income is under 235% of FPL. The child must not be eligible for Medicaid or covered by private insurance. This program covers periodic well-child physical examinations, physician office visits for illness or injury, emergency care, routine immunizations, hospital outpatient care including surgery, and diagnostic services and vision service.81 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 23 State Report | ALABAMA part II: profile of alabama Ryan White Program In FY07, Alabama received $26,632,913 in Ryan White funding, 1.3% of the approximately $2.1B national Ryan White appropriation. The following chart shows the breakdown of Ryan White funding by part: FY07 Alabama Ryan White Funding Ryan White part $ amount % of total AL . Ryan White funding Part B (total)* $ 19,791,847 74% Part C $ 5,645,891 21% Part D $ 1,174,204 4% Part F (dental reimbursement) $ 20,971 <1% TOTAL $ 26,632,913 100% † ‡ *Part B includes a base grant for a state, the ADAP award, ADAP supplemental grants, and grants to states for emerging communities (communities reporting between 500 and 999 cumulative reported AIDS cases over the most recent 5 years). †Part C Early Intervention Services funds comprehensive primary healthcare in outpatient settings. ‡Part D funds family-centered services involving outpatient care for women, infants, children, youth, and families. In FY07, Alabama received no Part A funds, which are reserved for eligible metropolitan areas and transitional grant areas. Alabama also received no funding for AIDS education and training centers, special projects of national significance, or the community-based dental partnership program.82 Ryan White funding is the main source of funding for HIV/AIDS programs in Alabama. This is problematic because unlike entitlement programs such as Medicaid and Medicare, Ryan White funds are subject to annual appropriations; the money can run out, and even people who meet eligibility requirements may not be able to receive services. In addition, Southern and rural states still receive disproportionately less funding than more urban states, despite the reallocation in the 2006 Ryan White HIV/AIDS Treatment Modernization Act. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 24 State Report | ALABAMA part II: profile of alabama AIDS Drug Assistance Program As of July 2009, the Alabama Department of Public Health reported 1,418 active patients in AIDS Drug Assistance Program (ADAP) with open enrollment.83 Enrollees must have a positive Western Blot test, be a resident of Alabama, have a total gross income at or below 250% of FPL, and not be eligible for other medication programs. ADAP provides medications during the Medicare Part D coverage gap (also called the “donut hole”), with proof from clients’ insurers or pharmacies that they are in the gap.84 It does not pay for Part D copayments for clients dually eligible for Medicaid and Medicare. For people who meet the ADAP categorical and income eligibility criteria, are enrolled in Medicare Part D, and have been denied low-income subsidy assistance (“extra help”), the Medicare Part D Client Assistance Plan (MEDCAP) will cover Part D premiums and copays for the Medicare Part D Plan selected by ADPH.85 MEDCAP clients must enroll in the Part D Plan chosen by ADPH; this plan can change from year to year.86 When MEDCAP participants reach the Part D donut hole, they are moved to ADAP for medication coverage, although MEDCAP continues to pay the Part D premiums.87 As of July 2009, there were 7 MEDCAP participants.88 Alabama ADAP covers 58 HIV medications. According to the ADPH Web site, as of September 2008, 45 “other medications” (including, among others, antidepressants; antipsychotics; medications for high blood pressure, diabetes, and high cholesterol; antibiotics; hepatitis B and C treatments; and vaccines for HPV and hepatitis A and B) were included in the ADAP formulary, with the caveat that “medications in this group may be removed from the formulary at any time to ensure that Alabama’s ADAP continues to maintain adequate funding to provide anti-HIV medications for enrollees.”89 Prior approval is needed for Fuzeon, Maraviroc, Procrit, and some hepatitis C medications. A list of drugs covered by ADAP is posted on the ADPH Web site.90 The total ADAP budget in FY08 for Alabama was $16,313,574 with federal funding of $11,238,171 (69%) and state contributions of $5,075,403 (31%).91 This was a 4% overall decline from FY07 ADAP funding levels, but the state contribution to ADAP actually increased 14% from FY07 to FY08 (comprising 31% of the FY08 budget vs 26% of the FY07 budget).92 In June 2008, Alabama ADAP served 1,207 clients (94% of whom were uninsured) and filled 3,219 prescriptions; the total drug expenditure for June 2008 was $1,132,283, or an average of $938.10 per client.93 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 25 State Report | ALABAMA part II: profile of alabama OTHER HIV/AIDS-RELATED LAWS AND POLICIES Under Alabama Code 22-11A-21, “Reporting Notifiable Diseases,” HIV transmission is a Class C misdemeanor. The law states, “Any person afflicted with a sexually transmitted disease who shall knowingly transmit, or assume the risk of transmitting, or do any act which will probably or likely transmit such disease to another person shall be guilty of a Class C misdemeanor.”94 Class C misdemeanors are punishable by fines of not more than $500.95 Alabama has a quarantine law and regulation that allows public health officials to isolate individuals with sexually transmitted diseases deemed to present a danger to the public health.96 Alabama AIDS service providers note that a sheriff in Tuscaloosa has invoked the quarantine law against a person living with HIV, and that there is always the threat of the law being used.97 Alabama mandates education about HIV and sexually transmitted infections, requiring that abstinence be stressed and contraception covered. Sex education is not mandated—if it is taught, it also must cover contraception but stress abstinence. Parents may opt their child out of sex or HIV education based on religious or moral beliefs.98 OTHER PROGRAMS SERVING PEOPLE WITH HIV/AIDS The Alabama HIV/AIDS Hotline (1-800-228-0469) is a toll-free source of information and referrals. Advocacy groups serving people with HIV/AIDS include HIV prevention community planning groups in every area of the state. There are also regional direct care consortia for planning of services in all local areas. Alabama Department of Public Health (ADPH) runs several HIV prevention programs. They have a “get tested” campaign employing 5 tractor trailers to advertise the need to get tested for HIV across the state. They have a brochure distribution program. They also run the HIV prevention community planning groups. These groups bring together health department employees, AIDS service and community-based organization staff, and other interested partners to develop new, culturally-sensitive HIV prevention and testing services. Each prevention network group is charged with 10 tasks, including alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 26 State Report | ALABAMA part II: profile of alabama fostering dialogue about HIV/AIDS, creating flyers and fact sheets, collaborating with health, education, and social service professionals, conducting prevention activities, and maintaining a calendar of events. The prevention network groups, corresponding to the 11 public health areas, are: • Northwest Alabama HIV Prevention Network Group (PHA 1) • Northeast Alabama HIV Prevention Network Group (PHA 2) • West Alabama HIV Prevention Network Group (PHA 3) • Jefferson County HIV/AIDS Prevention Network Group (PHA 4) • HIV/AIDS Ongoing Prevention Education (HOPE) Network Group (PHA 5) • Cheaha-Coosa Valley HIV Prevention Network Group (PHA 6) • Black Belt HIV Prevention Network Group (PHA 7) • East Central Alabama HIV Prevention Network Group (PHA 8) • Southwest Alabama AIDS Prevention Coalition (PHA 9) • Southeast Alabama HIV Prevention Network Group (PHA 10) • Mobile County HIV Prevention Network Group (PHA 11) There are a number of private programs serving people in Alabama with HIV/AIDS. A nonexhaustive list includes: • AIDS Alabama (Birmingham, www.aidsalabama.org ): AIDS Alabama operates a statewide rental assistance program and provides transitional and permanent housing, including substance abuse housing and rural housing, to people living with HIV/AIDS. AIDS Alabama also offers mental health, substance abuse, transportation, testing, and prevention education services for people with HIV/AIDS, and researches access to rural care. AIDS Alabama provides annual conferences and trainings for the state’s community-based organizations and clinics on case management, post-test counseling, housing, and other pertinent topics. • AIDS Action Coalition (Huntsville, Florence, www.aidsactioncoalition.org/ welcome/index.html): AIDS Action Coalition runs the Davis Clinic, which treats individuals with HIV/AIDS on a sliding scale basis. Confidential testing is available along with support services, including social support, transportation assistance, and medication assistance. AIDS Action Coalition also engages in alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 27 State Report | ALABAMA part II: profile of alabama community education and prevention. • Alabama Disability Advocacy Program (www.adap.net/hiv.html): The Alabama Disability Advocacy Program provides legal counsel for individuals with HIV/AIDS. Cases include insurance, employment, immigration, guardianships, and wills. • Alabama Family Trust (www.alabamafamilytrust.com): Alabama Family Trust assists with preparation of special needs trusts for people receiving needs-based government benefits. • Birmingham AIDS Outreach (Birmingham, www.birminghamaids outreach.org/): Birmingham AIDS Outreach offers food, transportation, help with medical costs, and a clothing closet for people dealing with HIV/AIDS. • Franklin Primary Health Center (Mobile, www.franklinprimary.org): Franklin Primary is a nonprofit community health center, focusing on the needs of the medically underserved, with 10 locations in Mobile, Baldwin, and Choctaw counties. Among the health services provided are HIV care, prevention, education, and testing services. • Health Services Center, Inc. (Anniston, www.hscal.org): The Health Services Center offers HIV medical care, education, and supportive services to a 14-county area of East Alabama. • H omeward Bound (Phenix City, www.homewardboundinc.net): Homeward Bound offers HIV education, testing, counseling, and prevention programs. Prevention programs focus on reaching African Americans and Latinos. Homeward Bound also provides a support group and local transportation assistance. • Jefferson County AIDS in Minorities (AIM) (Birmingham, 205-781-1654): Jefferson County AIDS in Minorities provides culturally sensitive services, including education, medical, mental health, family therapy, and referral services, in the minority communities of the greater Birmingham metropolitan area. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 28 State Report | ALABAMA part II: profile of alabama • Montgomery AIDS Outreach (Montgomery, Dothan, www.maoi.org): Montgomery AIDS Outreach provides medical care, social services, and prevention education in Montgomery and 22 surrounding counties in Southeast Alabama. MAO operates the Copeland Care Clinic in Montgomery, a clinic in Dothan, and rural clinic sites in Auburn, Clayton, Greenville, Selma, and Troy. • Selma AIR (AIDS Information and Referral) (Selma, www.selmaair. bravehost.com): Selma AIR promotes community awareness of HIV/AIDS and provides HIV/AIDS education and services in 8 counties within the Black Belt area (Choctaw, Dallas, Hale, Lowndes, Marengo, Perry, Sumter, and Wilcox counties). Services include certified HIV/AIDS educators, a speakers’ bureau, counseling and testing, case management, a health monitoring clinic, and support groups. • South Alabama CARES (Community AIDS Resources, Education & Support) (Mobile, www.southalabamacares.org): South Alabama CARES provides support, assistance, education, and advocacy for people affected by HIV/AIDS and provides HIV prevention education and awareness to the community of Southwest Alabama. Client services include case management, social and practical support services, and housing. • Unity Wellness Center (UWC) (formerly AIDS Outreach) (Auburn, www.aidsoutreacheamc.org ): UWC, in partnership with East Alabama Medical Center, provides services to people living with HIV in a 5-county, extremely rural area covering 3,000 square miles in east Alabama. UWC services include access to medical care, medications, medical and nonmedical case management, HIV counseling and testing and post-test education, outreach, housing (rural housing campus), emergency financial assistance, and transportation. • UAB (University of Alabama Birmingham), 1917 Clinic (Birmingham, www.1917clinic.org/): The 1917 Clinic at UAB has provided healthcare and a wide range of supportive services to people living with HIV/AIDS and their families for more than 21 years. The 1917 Clinic uses multidisciplinary teams to engage and retain patients in medical care and social service support, and provides a “one-stop shop” for HIV care. Project CONNECT facilitates prompt access to care for new clinic patients. The clinic also conducts clinical trials to find new HIV/AIDS treatments and educates other healthcare providers about the care and management of HIV disease. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 29 State Report | ALABAMA part II: profile of alabama • UAB (University of Alabama Birmingham), The Family Clinic (Birmingham, Montgomery, www.uabhealth.org/12343/): Part of UAB’s Department of Pediatrics, the Ryan White–funded Family Clinic provides comprehensive medical care and supportive services to families infected and affected by HIV/AIDS. • West Alabama AIDS Outreach (Tuscaloosa, www.waao.info/en/): West Alabama AIDS Outreach offers free confidential testing and education, as well as case management and other support services for individuals living with HIV/AIDS. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 30 State Report | ALABAMA part III: s uccesses, challenges, and opportunities MEDICAID IN ALABAMA Challenges Alabama residents seeking health coverage through Medicaid face challenges first in getting access to the program, and if enrolled, face further challenges due to the limited scope of services covered. Alabama’s Medicaid program has lower income eligibility levels and is more restrictive than many other states’ programs. Nonelderly adults in Alabama generally get Medicaid coverage in one of 2 ways: by being part of a low-income family with children, or by receiving Supplemental Security Income disability benefits from the federal Social Security Administration.99 Medicaid for Low-Income Families (MLIF) is a healthcare program that covers the parents or caretaker relatives in very low-income families with children under 19. To be eligible for MLIF in 2009, a family of 2 must have income of less than $137 per month, and a family of 4 less than $194 per month. The Alabama Medicaid Agency itself notes that MLIF meets federal income requirements, “but is well below the national average” and “ [c]overs only the poorest of the poor” at 11.5% of the Federal Poverty Level (FPL).100 In fact, Alabama’s income eligibility standard for families is the lowest in the nation.101 To get SSI benefits, claimants must be found disabled by the SSA, an arduous process that often takes several years. In most states, including Alabama, simply being HIV-positive and low-income is not enough to qualify for benefits. A person must also have another medical condition severe enough to prevent him or her from working.102 To receive SSI-related Medicaid in Alabama, individuals must have income less than $694 per month in 2009 (77% of FPL). Unlike many other states, Alabama has no “medically needy” Medicaid eligibility category. A medically needy category allows people who are categorically eligible for Medicaid (such as the disabled) but slightly over the income limit to become eligible by spending down their excess income until they meet the income requirements. Medically needy eligibility recognizes that high healthcare costs can push near-poor individuals into poverty. Alabamians who do obtain Medicaid coverage receive a benefit package that is among the most limited in the nation. Doctor’s visits are limited to 14 per year, hospital days to 12 per year, and no preventive care is offered.103 Alabama Medicaid covers 13 optional services (out of 27 listed), including prescription drugs, clinic services, and hospice services,104 but this coverage is limited. Patients are generally alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 31 State Report | ALABAMA part III: s uccesses, challenges, and opportunities allowed no more than 5 brand name prescriptions per month, but for antiretroviral (and antipsychotic) medications, the limit is 10 brand name prescriptions per month. Prior authorization is generally required for drugs not on the preferred drug list (but is not required for HIV medications).105 The preferred drug list is posted on the Alabama Medicaid Agency Web site.106 One optional service that Alabama Medicaid covers is transportation through the nonemergency transportation (NET) program. NET requires prior authorization and provides transportation only to appointments for Medicaid-covered services.107 Alabama providers report that Medicaid paratransit is difficult to use. Clients themselves must call to request the service (rather than having a social worker or case manager call), and the organizations rarely get reimbursed. Clients state that Medicaid paratransit does not transport clients across county lines, even if the closest medical provider is in a neighboring county.108 This does not appear to be an official regulation or policy, as neither the Alabama Medicaid Provider Manual nor materials provided for Medicaid recipients refer to transportation across county lines.109 There are a few bright spots in the Alabama Medicaid program for people living with HIV/AIDS. Alabama is one of only 11 states with a targeted case management program for people with HIV. Even more unique is the fact that this program is funded by Medicaid. Although there have been funding problems in the past, the Alabama Medicaid Commissioner remains committed to reimbursing for these services. This frees up Ryan White funds to provide services to people who would not otherwise get assistance. One issue flagged by advocates as problematic with case management is the policy that only one provider can get reimbursed for providing services to a client, even if the client receives different services from more than one provider. For example, if a client received housing-related services from one provider and transportation services from another, only one of the providers could “claim” the client and receive payment.110 This poses significant burdens for providers, especially when there are few “one-stop shops” for clients to get all the services they need. Alabama also has a Medicaid waiver to provide in-home care for people with HIV/AIDS who would otherwise be in a nursing home. Eligibility for this program is less restrictive than for regular Medicaid. The HIV home care waiver program has 200 spots, with 60 currently filled. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 32 State Report | ALABAMA part III: s uccesses, challenges, and opportunities Opportunities Alabama’s Medicaid program can be improved both in access and coverage. Raise Medicaid income standard/create “medically needy” eligibility category Raising the Medicaid income standard and/or creating a medically needy spend-down category of eligibility would allow more people affected by HIV/AIDS to access health coverage. As part of the 2009 American Recovery and Reinvestment Act (ARRA, known as the “stimulus act”), all states will receive a 6.2% increase in base federal medical assistance percentage (FMAP). States with significant changes in unemployment could get an additional FMAP increase. The Alabama Medicaid Agency has stated that “every 1% increase in the FMAP provides $38M additional dollars to the state.”111 A 6.2% increase should bring an additional $235.6M to Alabama, which could be used to expand Medicaid coverage. The US Government Accountability Office has estimated that Alabama will receive an additional $850M from ARRA for Medicaid costs from FY09-FY11.112 Raise Medicaid reimbursement rates In addition to expanding coverage, the enhanced FMAP funding could also be applied to improve Medicaid reimbursement rates. Low reimbursement rates put providers in a position of not being able to afford to provide care to Medicaid beneficiaries, further exacerbating already limited access to care (see section 2, “Provider Shortages in Alabama”). Use presumptive eligibility/HIV waiver Other states have increased Medicaid access for people with HIV/AIDS by creating a presumptive eligibility category and by using waivers to cover predisabled HIV-positive individuals. Both Massachusetts and Maine have waivers allowing HIV-positive lowincome people to qualify for Medicaid. Earlier access to Medicaid can actually reduce costs, as people with earlier access to care stay healthier longer, and can avoid more expensive medical interventions. The federal Early Treatment for HIV Act (ETHA), which is modeled on the Breast and Cervical Cancer Prevention and Treatment Act of 2000, would expand on the Maine and Massachusetts examples. ETHA would give all states the option of providing Medicaid coverage to low-income, predisabled people living with HIV and would provide states with enhanced FMAPs for the program. Advocates should ask Alabama’s members of alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 33 State Report | ALABAMA part III: s uccesses, challenges, and opportunities Congress to cosponsor and actively support ETHA. Improve Medicaid benefits package and make benefits easier to use Advocates can also look at improving the Alabama Medicaid benefits package by increasing the number of doctor and hospital visits covered, either generally or through a “carve-out” for people living with AIDS. The NET program (transportation) could also be modified to improve access to care. Two ways to do this would be (1) to allow organizations to call Medicaid paratransit instead of the clients, to schedule trips that could serve multiple patients; and (2) to end the restriction and practice prohibiting crossing county lines for care. There should be a closer look at the existing home care HIV waiver, to determine why only 60 of 200 slots are filled. Advocates suggest that one possible reason is the procedural and paperwork burdens of the program, such as the requirement that a doctor certify the cost-effectiveness of the home care.113 Ways to streamline the home care waiver application process should be considered. Finally, Alabama HIV/AIDS advocates should continue to work in collaboration with other advocates in the state to improve Medicaid access and services. PROVIDER SHORTAGES IN ALABAMA Challenges There are shortages of primary care providers (PCPs) across the nation, but the situation in Alabama is particularly dire. About 20% of people nationally are medically disenfranchised—that is, lack adequate access to a PCP due to a local shortage of physicians.114 In Alabama, nearly 56% of residents were medically disenfranchised in 2005—more than twice the national average and the highest rate in the nation.115 More than 1 million Alabama residents lack access to a PCP.116 For people living with HIV/AIDS, finding good healthcare can be even more difficult, both in Alabama and across the country. A recent survey by the American Academy of HIV Medicine indicated that nearly one-third of surveyed HIV healthcare providers (including physicians, physician assistants [PAs], and nurse practitioners [NPs]) intend to stop practicing over the next 10 years.117 Alabama has relatively few doctors qualified and willing to provide HIV care. Reasons for the shortage of HIV physicians include the specialized training needed, the relatively low reimbursement rates (especially in the Medicaid program), and the stigma associated with HIV-affected individuals.118 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 34 State Report | ALABAMA part III: s uccesses, challenges, and opportunities The shortage of physicians in Alabama has dramatic effects, and can compromise both individual and public health. One effect is the often long wait to get an appointment. The lack of qualified providers in Auburn and Huntsville has at times resulted in a 3-month wait to see an HIV-trained physician.119 It is difficult to attract physicians to work in HIV clinics, as indicated by the difficulties that the 1917 Clinic at the University of Alabama Birmingham has had in finding new providers.120 Staff at another clinic in Florence noted that they have been searching for more than 8 months for a physician to work only 1 afternoon a week—thus far, with no success.121 Along with protracted waits for appointments, the lack of physicians means that patients must often travel long distances to see a doctor. Dr. John Wheat, professor of community and rural medicine at the University of Alabama College of Community Health Sciences and School of Medicine, states, “In the Black Belt, people have to drive 70 miles to get a doctor to care for them.”122 People who need to see a specialist may have to travel even farther. Alabama AIDS services providers report that some clients can spend 7 hours getting to and from medical appointments.123 Public transportation is minimal and only exists in more urban areas.124 Volunteer organizations have attempted, with some success, to meet clients’ transportation needs through creative solutions. However, the costs of traveling long distances for medical care can often be prohibitively expensive, both for individuals and for resource-strapped organizations that try to help them. AIDS service providers report that it can cost up to $250 per trip per patient to get clients to appointments.125 The long waits for appointments and long travel times caused by the shortage of providers compromises standards of care for people living with HIV/AIDS, and can negatively affect their health. Research has found that lack of a PCP (including an NP or PA) leads to worse outcomes for HIV-positive patients.126 In addition to poor health outcomes for individuals, the lack of physicians can also lead to damaging public health consequences. Individuals whose access to care is erratic may be less likely to adhere to treatment regimens, leading to the development of drug-resistant strains of HIV. Individuals who do not have consistent healthcare may be more likely to engage in behaviors that can spread HIV.127 They may also have higher viral loads, making them more likely to transmit HIV if they do engage in risky behaviors. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 35 State Report | ALABAMA part III: s uccesses, challenges, and opportunities Opportunities There are several possible opportunities that could help address the problem of provider shortages. Raising Medicaid reimbursement rates, creating more incentives for clinicians to practice in underserved areas, and encouraging increased use of NPs and PAs are all methods by which to attract additional providers and to encourage existing ones to treat HIV-positive patients. Raise Medicaid reimbursement rates As discussed in section 1, “Medicaid in Alabama,” the rates of reimbursement through Medicaid are often insufficient to cover the costs of providing HIV care. For example, the 1917 Clinic loses around $1M a year because of poor reimbursement rates.128 HIV-positive patients often require more complex management and are more time intensive, a problem when reimbursement rates for office visits can be as low as $17.129 Without an increase in reimbursement, it will be difficult to attract and retain healthcare providers in Alabama and to get them to accept Medicaid patients. Offer clinicians incentives for rural practice Another way to attract medical talent to Alabama would be to create incentives for clinicians to practice in underserved areas. Alabama has a state income tax credit for physicians who practice and reside in rural communities.130 A bill introduced in the 2009 legislative session (HB 618) would have increased the amount of this tax credit and extended the years for its allowance. Another bill (SB 21) would have increased the amount of scholarships for medical students agreeing to practice in rural areas. Neither bill passed. Alabama could also consider the creation of loan forgiveness programs to attract new providers to work in rural areas and with poorer populations. New Mexico Health Resources operates a program in that state that matches individual practices and clinics with new providers. It also coordinates with many federal and state loan repayment programs. By careful outreach and placement, New Mexico Health Resources allows students to pursue financial assistance in exchange for service in underserved areas. Although these students often leave after the terms of the service are met, there is a constant source of new providers through these programs. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 36 State Report | ALABAMA part III: s uccesses, challenges, and opportunities The federal National Health Service Corps (NHSC), part of Health Services Resource Administration (HRSA), helps communities recruit and retain healthcare providers, and provides loan forgiveness for clinicians who work in health professional shortage areas. Alabama Department of Public Health has used this federal program in the past to find doctors for underserved areas of the state.131 But the NHSC loan forgiveness program applies only to PCPs, not to specialists.132 Many of the sites that qualify for NHSC participation, such as federally qualified health centers or rural health centers, do not have expertise in HIV treatment. Working with HRSA to create a federal requirement that NHSC sites have HIV treatment expertise, or be able to link patients to a site that does, would improve access to care for Alabamians living with HIV disease in medically underserved areas. According to advocates, some of these conversations with HRSA are already happening.133 Expand the scope of practice for nurse practitioners and physician assistants Other states use NPs and PAs to address physician shortages. NPs are registered nurses who have a master’s degree or other advanced training in nursing.134 Alabama’s NPs must have a master’s degree or higher.135 NPs are required to be in a collaborative relationship with a physician in order to practice, and the collaborating physician must be on-site for at least 10% of the NP’s scheduled hours.136 PAs in Alabama must have graduated from an approved program, be licensed and registered by the State Board of Medical Examiners, and work under the supervision of a physician.137 A recent study in the Annals of Internal Medicine found that the quality of care provided by NPs and PAs was similar to or better than care provided by doctors in HIV clinics.138 Despite the severe shortage of healthcare providers, Alabama’s regulations significantly limit the ability of NPs and PAs to practice. The “10% on-site” rule for NPs makes it very onerous to sustain remote-practice sites in rural locations, where there are few practicing physicians. The cumbersome administrative process and fees associated with NP collaborative practice are also a disincentive. Alabama should simplify the collaborative practice process and eliminate fees for collaborative practices in underserved areas.139 Alabama also restricts the scope of practice for PAs and NPs more than other states. The Alabama State Nurses Association (ASNA) notes that “Alabama is one of the most restrictive states in the union in allowing NPs to do what they are trained and educated alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 37 State Report | ALABAMA part III: s uccesses, challenges, and opportunities to do.”140 Alabama ranked last in the nation in a survey of NP practice regulation and consumer healthcare choice.141 Alabama is one of very few states that still restrict PAs and NPs to a specific list of allowed tasks. The American Academy of Physician Assistants notes that Many state legislatures or licensing boards created lists of items that could be included in a PA’s scope of practice. However, states soon determined that this approach was both impractical and unnecessary…most state laws have abandoned the concept that a medical board or other regulatory agency should micromanage physician-PA teams.142 Most other states in the country use a standard that sets a PA’s scope of practice as medical functions within the scope of practice of the supervising physician, as delegated by the supervising physician.143 One specific example of restrictions on PA and NP practice pertains to prescribing controlled substances. Controlled substances in Alabama include medications considered to have a high potential for dependence or abuse, such as opiates, stimulants, and depressants.144 According to the Alabama Society of Physician Assistants, the inability to prescribe routine medications compromises the provision of quality primary care, increases the number of visits to emergency rooms, and forces patients to make return trips to the doctor’s office.145 Alabama is one of 3 states that do not allow NPs to prescribe controlled substances.146 Until 2009, Alabama was one of 4 states where PAs cannot prescribe controlled substances.147 In the 2009 legislative session, Alabama lawmakers passed the PA Controlled Substance Bill (HB 484/SB 359), which allows supervising physicians to delegate authority to PAs to prescribe Schedules III through V controlled medications.148 Governor Riley signed the bill, which was supported by the Medical Association of the State of Alabama (MASA), into law on May 13, 2009.149 Because PAs and NPs often help provide care to underserved populations, restrictions on their practice can have a disproportionate negative effect on individuals who already face significant barriers to care. Changing Alabama law to lessen restrictions and broaden the scope of PA and NP practice could help improve healthcare access, alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 38 State Report | ALABAMA part III: s uccesses, challenges, and opportunities particularly for marginalized populations. There are numerous ways to do this. Passage of the PA Controlled Substance Bill is a start. Alabama should also consider joining the majority of states by allowing PAs’ scope of practice to be determined by the supervising physician, rather than by a specific list of activities. Expanding NPs’ scope of practice is essential to improving healthcare access. Currently, a Joint Committee of the Board of Nursing and the Board of Medical Examiners oversees NP practice. One commentator has noted that letting the scope of practice be determined by the Board of Medical Examiners may restrict access to care, because the board of medicine often votes in the interest of cutting down on competition with doctors.150 A bill in the 2009 legislative session would have remedied many of the limitations on NP practice. Filed by Senate Health Committee chair Linda Coleman, SB 483 would have given the Alabama Board of Nursing sole regulatory authority over NPs (retaining physicians in an advisory capacity only), would have deleted the requirement for NPs to have a written collaborative agreement with a physician, would have designated NPs as PCPs, and would have allowed NPs to prescribe Schedules II-V controlled drugs.151 While a public hearing was held on SB 483 in April 2009, the bill died in the Senate Health Committee. As with similar bills in the past, MASA strongly opposed SB 483. MASA believes that patient quality of care would be compromised by NPs practicing independent of physician oversight, and that the current law provides enough flexibility for NPs to see patients without a physician present, while still providing patient safeguards.152 Of note is the fact that the Executive Director of the Board of Medical Examiners is Alabama Senator Larry Dixon, who sits on the Senate Health Committee. Senator Dixon has opposed efforts to expand patient access to NPs and efforts to implement nationally recognized standards for NP scope of practice.153 Also significant is the fact that under Alabama law, MASA’s Board of Censors (the group that sets policy for MASA) is the Board of Medical Examiners.154 Thus, a group that does not want expanded roles for NPs is the group regulating NP collaborative practice agreements. Increase reimbursement rates for NP and PA services Another barrier to using NPs and PAs to expand access to care is insurance alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 39 State Report | ALABAMA part III: s uccesses, challenges, and opportunities reimbursement of services. A report prepared at the request of Alabama Representative (and physician) Robert Bentley found that the majority of NP practices in Alabama were adversely affected by the lack of adequate third party reimbursement, and that the majority of Alabama’s insured residents do not have NP coverage.155 Another report observes that because the Alabama Nurse Practice Act156 defines NP practice as “the performance of nursing skills” rather than the provision of healthcare, insurers use this distinction to deny payment for services which, if performed by a physician, would be paid in full.157 Blue Cross Blue Shield, Alabama’s largest private insurer, reimburses certified registered NPs and certified nurse midwives in collaboration with a physician at 70% of the physician rate.158 PAs are also reimbursed at 70% of the physician rate by Blue Cross Blue Shield.159 Other private insurance companies either do not reimburse care provided by NPs or reimburse at a greatly reduced rate. Amending the Nurse Practice Act to designate NPs as PCPs could help, but advocates observe that MASA and Blue Cross Blue Shield oppose this, since it would allow unfettered control of NP reimbursement for both commercial insurers and Alabama Medicaid.160 Using nonphysician providers has economic consequences for healthcare facilities— in fact, clinics operate at a loss when they use NPs on patients with private coverage.161 A clinic that is struggling financially will receive lower payments when NPs or PAs provide the same services that doctors do. But the clinic may be using NPs or PAs because it cannot find a doctor willing to work there. The current reimbursement structure creates perverse economic incentives for clinics to turn patients away at the door, rather than incur further financial losses by treating them. Increasing reimbursement rates for NPs and PAs across the board would help correct this. At a minimum, facilities that can certify that they are unable to get a physician to provide services should get increased reimbursement rates from insurers for NP and PA services. Alabama has within its power the ability to improve its medical provider shortage problem. In particular, Alabama should increase incentives for clinicians to practice in underserved areas, expand PA and NP scope of practice, raise reimbursement rates, and require private insurance coverage of PA/NP services. Such measures would enable more Alabamians to access care, improving health and quality of life. Expanding healthcare access is also cost-effective, as a healthier population is better able to work (and pay taxes) and less likely to need high-cost medical interventions. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 40 State Report | ALABAMA part III: s uccesses, challenges, and opportunities STATE REVENUE AND SPENDING ISSUES Challenges Alabama’s revenue and appropriations structures present significant challenges and unique opportunities for HIV and AIDS-related programs in the state. Alabama’s Department of Revenue collected approximately $8.7B in 2007, ranking 44th in the nation in state government tax collected per person.162 For total state government tax collected in 2008, Alabama ranked 26th out of all states.163 Alabama’s total appropriations were $11.5B in FY09.164 Alabama appropriates more than it collects in tax revenue because it gets additional revenue from fees and other “non-tax” assessments. Despite these additional revenue streams, Alabama’s pool of funds is markedly limited compared with other states around the nation. These limited resources are largely due to low tax rates on property, low income taxes, and a system of credits and deductions that is particularly generous to wealthy economic actors.165 The state’s limited resources become even more pronounced for HIV/AIDS-related programs because Alabama earmarks more than 80% of revenue for programs outside the discretionary State General Fund, which funds much of the state’s public health needs.166 These 2 areas—earmarking and tax policy—are significant challenges to the current HIV/AIDS infrastructure in the state, but they also represent areas where even small changes could have a significant positive impact on resources for HIV/AIDS programs and Alabama’s public health in general. Alabama’s largest overall sources of nonfederal revenue are income tax, sales tax, and insurance premium taxes (in lieu of income taxes on insurance companies).167 However, the distribution of those taxes across the economy and the population may not be as efficient as they could be. A recent study found Alabama’s tax code to be the most onerous in the nation for families living at the poverty line.168 Another analysis found that families in the lowest 20% of incomes (less than $16,000 a year) pay more than 11% of their incomes in state and local taxes, while families in the top 1% of incomes ($316,000 a year and above) pay 4.3%.169 Alabama residential property taxes are the second lowest in the nation (only Louisiana has lower taxes).170 In contrast, combined state and local sales taxes are above the national average.171 Individual income taxes and corporate taxes are some of the nation’s lowest, and deductions for wealthy individuals and myriad corporate activities help keep state tax receipts at such a low level.172 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 41 State Report | ALABAMA part III: s uccesses, challenges, and opportunities Recent efforts to reform the tax system in Alabama have not been successful. Bills filed in the 2009 legislative session (HB 116 and SB 115) would have removed the 4% state sales tax on groceries. Alabama is one of only 2 states, along with Mississippi, to fully tax groceries.173 Alabama is one of only 3 states (Iowa, Louisiana) that allow taxpayers to fully deduct federal income taxes when computing the amount of state income tax owed.174 The grocery tax cut would have been paid for by capping, for the highestearning households, the amount of federal income tax allowed to be deducted when determining state income taxes. HB 116 and SB 115 both failed to pass. Alabama’s extensive earmarking of revenue exacerbates the challenges posed by these limited resources. In 2008, just under 18% of Alabama’s annual revenue was directed toward the general fund, while more than 80% was earmarked for other specific uses. Many states earmark a significant amount of their revenue but Alabama does so more than any other state.175 By far the largest recipient of state revenue is the education trust fund, receiving approximately 70% of state tax revenue and more than 55% of total appropriations in FY08.176 While a small portion of the education trust fund is directed toward health-related programs, it amounts to less than 1% of state healthcare appropriations.177 Half of the state’s Medicaid contribution and a third of all other public health funds come from the general fund.178 Other funds earmarked for Medicaid and public health come from earmarked funds like tobacco settlement monies and transfers from numerous other state agency collections.179 Efforts to increase revenue or “unearmark” funds have been met with tremendous political opposition in Alabama. Political leaders, HIV/AIDS service providers, and numerous local commentators make clear that Alabamians are fervently antitax and distrustful of legislative discretionary spending.180 This political reticence, coupled with the limited flexibility imposed by the state’s earmarking policy, is a significant challenge for parties aiming to increase state contributions to HIV/AIDS programs. Opportunities While Alabamians have been wary of legislative discretionary spending, they have also shown a significant commitment to certain types of public spending and budgetary discipline. The state’s rainy day fund, its substantial annual commitment to the education trust fund, and its willingness to offer generous tax deductions for certain individual and corporate groups demonstrate a commitment to steady and generous public investment in targeted areas. Therefore, if specific earmarks for HIV/AIDS funding alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 42 State Report | ALABAMA part III: s uccesses, challenges, and opportunities could be designed in politically palatable ways, if new tax credits could be offered for private investment in the state’s public health infrastructure, or if the state could make even small changes to the general fund’s revenue streams, the outlook for HIV/AIDS funding in the state might significantly improve. Broader structural change may require state constitutional reform. All efforts could be helped by better educating the public about Alabama’s revenue and appropriation structure. Finding a way to involve Alabama’s business community could also help with funding. While Alabama businesses have been commendably involved with improving the general perception of Alabama, they have shown relatively little interest in HIV/AIDS issues. This perhaps relates to the stigma about HIV/AIDS still present in Alabama or the perception that HIV/AIDS issues are not especially relevant to the business community. Demonstrating that there are economic, as well as public relations, advantages associated with HIV education, prevention, and treatment could increase support from the business community. HIV AND SEGREGATION IN PRISONS As of 2006, Alabama had 297 inmates living with HIV within its prisons.181 Alabama is one of only 3 states in the nation to maintain a policy of housing HIV-positive inmates in quarters segregated from other prisoners.182 Before 2007, Alabama Department of Corrections (ADOC) policy excluded HIV-positive prisoners in state-run prisons from many programs and activities available to HIV-negative inmates. Inmates with HIV were not allowed to eat with other prisoners, hold prison jobs, use family visiting rooms, participate in work release programs, participate in sports or recreational opportunities, or have regular access to religious services.183 Past successes In 2007, pressure from state legislators, along with advocates from the American Civil Liberties Union (ACLU) of Alabama and AIDS Alabama, prompted ADOC Commissioner Richard F. Allen to implement a reform of prison policies and procedures. These reforms integrated HIV-positive inmates with the general prison population for visitation, substance abuse treatment, educational programs, and religious services.184 In addition, the HIV-positive inmates at Tutwiler Prison for Women were allowed to eat in the dining hall with the rest of the prison population. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 43 State Report | ALABAMA part III: s uccesses, challenges, and opportunities Inmates with HIV are also integrated into ADOC’s Pre Release and Reentry Program. This program, which was announced in 2007, works with inmates who are near the end of their sentences to prepare them for reentering their communities. Inmates learn basic living and job search skills, and are linked with resources to help them transition from prison successfully. Goals of the program include reducing recidivism, increasing public safety, and decreasing public health and social disparities within the offender population.185 The current Pre Release and Reentry program is based on the Alabama Prison Initiative (API), a program that was originally only for inmates with HIV/AIDS. API is a collaborative partnership between the Alabama Departments of Corrections and Public Health. API is supported by statewide AIDS service organizations and communitybased organizations, which provide services to prisoners both pre- and post-release.186 In August 2009, after more than 20 years of advocacy by the ACLU and others, ADOC changed its prison work-release policy to allow HIV-positive inmates to participate in work-release programs.187 This is an important victory, and one that can significantly improve the likelihood of successful reentry into community life for inmates living with HIV. Challenges The recent ADOC policy changes have improved and will continue to improve life for Alabama’s HIV-positive prisoners, but challenges remain. Male HIV-positive prisoners at Limestone Correctional Facility are required to eat separately in their living area, because of “logistical reasons and space limitations.”188 All HIV-positive inmates are still housed separately from the general population in HIV-only dormitories. ADOC’s policies continue to prevent HIV-positive prisoners from having access to the full range of programs and services available to other inmates. In addition to program access, segregation by HIV status raises issues of privacy because HIV-positive inmates are easily identified by everyone else in the prison community. HIV-positive inmates lose control over decisions about when and to whom to disclose their status. Segregation policies also reveal HIV status to visiting family members. Trying to change ADOC’s segregation policies through the courts has generally been unsuccessful. In 1991, the 11th Circuit ruled that isolating HIV-positive inmates did not violate any constitutionally protected privacy rights of inmates.189 Eight years later, the 11th Circuit found that participation in any prison program by HIV-positive inmates posed alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 44 State Report | ALABAMA part III: s uccesses, challenges, and opportunities a significant risk of transmission and the state was not required to hire additional guards to allow integrated programs.190 However, an Alabama state court ruled that sharing a jail cell with an inmate dying of AIDS did not violate the eighth amendment.191 A 2002 federal lawsuit by HIV-positive inmates at Limestone (known as the Leatherwood case) resulted in a settlement agreement with the state, but the agreement focused primarily on improving dismal living conditions and medical care, rather than on desegregation of programs. While the courts have not been receptive to antisegregation arguments, there has been some support from Alabama state government. In 2003, the Alabama governor’s HIV Commission for Children, Youth and Adults found that, “evidence is overwhelming that the exclusion of prisoners from educational, vocational, rehabilitative, or communitybased corrections programs, simply on the basis of HIV status, has no public health or correctional justification.”192 The commission went on to recommend “that prisoners with HIV/AIDS be allowed to participate in all in-prison and out-of-prison programs on an equal basis with other prisoners.”193 As a result of the Commission’s report, in 2005 ADOC began allowing HIV-positive inmates at Tutwiler and Limestone to participate in some vocational training programs alongside HIV-negative inmates. These integrated training programs have worked well.194 Opportunities ADOC’s changes in HIV-related policies over the past few years provide some encouragement that more can be done to end prison segregation. Advocates can build on recent successes in a number of ways. Increase collaboration among state agencies and community organizations Collaboration and “cross-fertilization” among ADOC, Alabama Department of Public Health (ADPH) (which has done HIV education in prisons for years), and community organizations, like that in the API, should be fostered and expanded. Information from other states’ innovative programs, such as the BRIGHT Project in North Carolina, could help demonstrate the effectiveness of such collaborative programs. The BRIGHT (Bridges to Good Health and Treatment) Project is a partnership between the University of North Carolina Chapel Hill and the North Carolina Department of Corrections. It uses an intensive case management model, starting 3 months prior to release, that focuses on inmates’ strengths and on actively connecting them to medical and social services in the community. Preliminary data from BRIGHT suggest that the program’s intervention reduces rearrest and the use of emergency medical services.195 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 45 State Report | ALABAMA part III: s uccesses, challenges, and opportunities Provide ADOC with more medical and public health information ADOC could be provided with more medical and public health evidence that punitive segregation policies do not further public health goals, and may in fact undermine them. The recent change in work-release program policies indicates that Commissioner Richard Allen and other ADOC officials are willing to consider such evidence, and adjust policies in response. Build broader coalitions Building on work already done, HIV/AIDS advocates can further develop coalitions with other like-minded groups, such as the ACLU, to push for an end to segregation, but should also think broadly and creatively about other possible allies, such as the business community. Explore possibility of a lawsuit While Alabama courts have not been particularly receptive to antisegregation arguments in the past, a lawsuit is one possible approach to seek an end to segregation in housing and programs. LACK OF ANTIDISCRIMINATION LAWS FOR PEOPLE LIVING WITH HIV/AIDS Challenges Alabama offers relatively little by way of state antidiscrimination protection for any Alabama residents, including people living with HIV/AIDS. There is no state administrative agency that handles discrimination claims. According to the Alabama Department of Labor, Alabama has no laws protecting people from losing their jobs— Alabama residents must rely on the antidiscrimination provisions in federal law.196 Where Alabama law does discuss employment and HIV status, it is only to limit HIV-positive healthcare workers’ participation in procedures with an increased chance of transmitting HIV.197 Given the lack of state antidiscrimination law, Alabama residents must rely on federal law to protect their rights. For people living with HIV/AIDS, the federal Americans with Disabilities Act (ADA) may provide a legal remedy. The ADA prohibits discrimination based on disability in public services and accommodations, and in employment situations. The US Supreme Court has found that HIV/AIDS is a condition covered by ADA protections.198 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 46 State Report | ALABAMA part III: s uccesses, challenges, and opportunities Opportunities Educate providers and consumers about federal antidiscrimination law protections Organizations such as the Alabama Disabilities Advocacy Program (www.adap.net) have already produced helpful materials designed to advise Alabamians living with HIV/AIDS about privacy, employment, insurance, and other issues. Advocates can continue to educate both consumers and providers about the protections available under federal antidiscrimination law, and can consider creative legal arguments for using federal law to protect HIV-positive Alabama residents. Explore filing state legislation While previous efforts to pass state antidiscrimination laws, such as the Alabamians with Disabilities Act, have been unsuccessful, it may be time to again consider drafting and filing a state antidiscrimination bill. As part of this, advocates could mount a public awareness campaign about the lack of protections for all residents (not just those living with HIV/AIDS) under state law. Such a campaign could include a broad coalition of interested groups, and could ask why Alabama does not protect its citizens from discrimination based on disability, race, ethnicity, gender, age, religion, sexual orientation, or national origin. Why are Alabama residents forced to depend on federal law and courts to guard their rights, particularly given the “states’ rights” political climate in Alabama? Why should Alabama’s residents have fewer rights than residents of other states? In conjunction with a legislative and public awareness strategy, a survey of other states’ antidiscrimination laws, and how Alabama compares, would be informative. One argument in favor of a state antidiscrimination law that covers people living with HIV/AIDS is that studies have shown individuals are more likely to seek testing in states with antidiscrimination laws.199 Antidiscrimination laws help reduce HIV stigma and encourage testing. Having more people in Alabama become aware of their HIV status would have both individual and public health benefits, as people who know their status are less likely to engage in behaviors that can transmit HIV. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 47 State Report | ALABAMA part III: s uccesses, challenges, and opportunities ADAP Past successes For those unable to procure health insurance, medication help is available through ADAP. As of May 2009, Alabama’s ADAP had no waiting list, after having had a list of up to 395 people in the past. Alabama ADAP also covers clients in the donut hole coverage gap of Medicare Part D. A total of 45 non-HIV-specific medications (to treat conditions such as diabetes, high blood pressure, asthma, and hepatitis) are part of the ADAP formulary as of September 2008. Challenges Eligibility for Alabama’s ADAP is restricted to those below 250% of FPL, which equals $27,075 for 1 person in 2009. Alabama is one of 8 states with gross income eligibility at 250% of FPL or lower; other states fall between 300% and 500% of FPL.200 According to the 2009 National ADAP Monitoring Project Annual Report, only 3 states have fewer drugs on their formularies than Alabama.201 ADAP is funded through discretionary federal Ryan White appropriations and state contributions. Alabama ADAP has an erratic funding history. In June 2004, President Bush announced the President’s ADAP Initiative (PAI), a release of $20M to address ADAP waiting lists in 10 states, including Alabama. At the time, Alabama had 395 people on its ADAP waitlist, and had the oldest waitlist in the country (started in FY99).202 Alabama froze enrollment in ADAP in 2004.203 Rather than use the approximately $4M in federal money from PAI to expand coverage, the state chose to cut its contribution for ADAP by 80%—from $2.86M to $560,000 from FY03 to FY04.204 In April 2005, ADAP needed an emergency $1M infusion by the state legislature to prevent 200 patients from losing ADAP help.205 Since then, state funding for ADAP rose from $3M in FY05 to $6M in FY06, before dropping 26% to $4.5M in FY07, then rising 14% to $5M in FY08. Funding for ADAP and other AIDS services in the FY10 General Fund budget was only $2.88M, approximately half of the $5.7M needed.206 Advocates contend that this appropriation is not enough to meet federal “maintenance of effort” requirements (risking loss of Ryan White funding), and that Alabama ADAP will have enrollment caps and a waiting list within a year.207 Such a financial shortfall could also mean that non-HIV-specific medications would no longer be included in the ADAP formulary. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 48 State Report | ALABAMA part III: s uccesses, challenges, and opportunities The up-and-down state contributions to ADAP pose a risk to individuals, who may lose access to medications, and to the broader public health, as people whose treatment is interrupted may develop drug-resistant strains of HIV. Opportunities There are several ways that Alabama ADAP could be improved, although FY10 funding constraints present significant obstacles. Raise income eligibility limit One improvement would be to raise the income limit for ADAP eligibility above 250% of FPL. This would bring Alabama more in line with the majority of other states. Address Medicare Part D coverage gaps ADAP in Alabama does not pay the Medicare Part D copays for people eligible for both Medicare and Medicaid (dual eligibles). Changing this policy would improve access to critically-needed medications for more people living with HIV/AIDS in Alabama. Alabama could look into creating an HIV-specific state pharmacy assistance program (SPAP) to help people in the donut hole obtain medications, as states like Illinois and North Carolina have done. Because SPAP contributions count toward recipients’ “true out-of-pocket expenditures” (TrOOP) for Medicare Part D, more people would be able to meet the TrOOP requirements, and thus reach the other side of the coverage gap—the “catastrophic coverage” level where the federal government pays 95% of prescription costs. This could potentially save the state money, as more participants could be transitioned to federally-paid medications, rather than remaining stuck in the donut hole where ADAP pays the entire cost of medications. Additionally, members of Congress from Alabama should be encouraged to support the inclusion of an “ADAP as TrOOP” provision in any federal health reform legislation. Such a provision would allow ADAP contributions to count as recipients’ out-of-pocket costs, and would enable more people to reach the other side of the coverage gap. Expanding access to medications benefits both individual health and public health, as people with consistent access to antiretroviral medications are less likely to transmit HIV and less likely to have drug-resistant HIV. As one Alabama newspaper has noted, it makes sense from both a human and economic perspective to ensure that low-income people with HIV/AIDS have access to life-saving medications.208 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 49 State Report | ALABAMA part III: s uccesses, challenges, and opportunities STATE HEALTH OFFICER APPOINTMENT Challenges Under Alabama law, the Medical Association of the State of Alabama is the State Board of Health (Board), which is charged with safeguarding the public health and acting as an advisory board to the state on medical and public health matters.209 The Board functions through the State Committee of Public Health (Committee), which is composed of 12 members of the MASA board of censors and the chairs of 4 health-related councils.210 The Alabama Department of Public Health is the administrative arm of the Board.211 The chief public health official for Alabama, known as the state health officer, must be a physician and is elected by the Committee, which is dominated by physicians.212 This structure creates a situation where the state health officer is not part of the governor’s administration, and where other voices in the health communities, such as nurses, PAs, social workers, and patients, have no say in who becomes the chief public health official. There is little incentive to improve public health or to examine health outcomes when there is no one to hold accountable, such as the governor. While the Board and Committee are technically accountable to the legislature, Alabama’s public health is essentially in the private hands of MASA. According to the Association of State and Territorial Health Officials, only 3 other states (Mississippi, Oklahoma, and South Carolina) have their boards of health choose the state health officer.213 In those states, however, members of the board of health are appointed by the governor, with Senate confirmation. Thus, Alabama is the only state to have its chief public health official selected by the state medical association. Individual physicians on the Board or Committee may have public health experience and a commendable commitment to the field. But the governing structure of Alabama’s public health organization concentrates power in an elite few, who do not have to answer directly to Alabama voters. The current state health officer, Dr. Donald Williamson, has served in that capacity for about 15 years. While he is knowledgeable about HIV/AIDS, he has not been particularly helpful in securing funding—Governor Riley zeroes out HIV budget line items every year.214 Opportunities Amending Alabama law so that the governor appoints the state board of health and/or the state health officer would bring more transparency and accountability and put public health in the public domain. At a minimum, various health stakeholders should have a role in public health governance and the election of the state health officer. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 50 State Report | ALABAMA part IV: conclusion People living with HIV/AIDS in Alabama face a number of obstacles to accessing affordable, quality, comprehensive healthcare. From a restrictive Medicaid program to a severe shortage of medical providers to an inhospitable state budget process, resources in Alabama are not keeping pace with the growing need for HIV/AIDS care and services. The difficult economic climate further compounds the problem by creating more need at the same time that available funds are decreasing. Despite the many challenges, there are specific, achievable opportunities to improve access to care and services for Alabamians living with HIV/ AIDS. The additional federal Medicaid dollars coming to Alabama through the American Recovery and Reinvestment Act of 2009 could be used to expand access to Medicaid. Expanding Medicaid access could free up some Ryan White ADAP funding, so that that program could offer improved coverage. Some opportunities, such as creating a state antidiscrimination law and expanding the roles of NPs and PAs, would not necessarily cost much and might ultimately save the state money. Alabamians living with HIV/AIDS and the providers who work with them are practical and creative. They have an impressive ability to make the most out of limited resources, which bodes well for enhancing healthcare and treatment access in the future. The strong collaborative spirit and tireless commitment of the AIDS services provider community are key assets in any effort to improve access to care and services in Alabama. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 51 State Report | ALABAMA appendix A: Alabama HIV/AIDS epidemiological information NUMBER OF AIDS AND HIV CASES IN ALABAMA* Cumulative HIV cases reported through 2007 (and as a percentage of US total) 6,430 (2%) Cumulative AIDS cases reported through 2007 (and as a percentage of US total) 9,091 (1%) Persons living with HIV through end of 2007 5,740 Persons living with AIDS through end of 2007 4,046 Rate of persons living with HIV, per 100,000 people, 2007 149.4 Rate of persons living with AIDS, per 100,000 people, 2007 105.4 AIDS cases reported in 2007 391 HIV cases reported in 2007 (some diagnosed earlier) 529 HIV cases diagnosed in 2007 447 AIDS case rate, per 100,000 people (and national AIDS case rate) Deaths reported among persons with AIDS through end of 2007 8.4 (12.4) 5,034 Sources: Centers for Disease Control and Prevention, Tables 11, 14, 16, 18. Cases of HIV Infections and AIDS in the United States and Dependent Areas, 2007. HIV/AIDS Surveillance Report, Vol. 19, 2009. www.cdc.gov/hiv/topics/surveillance/resources/reports/2007report/default.htm; Kaiser Family Foundation, State Health Facts, www.statehealthfacts.org/profileind.jsp?ind=525&cat=11&rgn=2. New HIV/AIDS cases in 2007 900 New HIV/AIDS cases in 2008 839 Cumulative HIV/AIDS case total as of 3/31/09 16,377 Source: Alabama Department of Public Health. HIV and AIDS Cases by Demographic Group and Exposure Category, Alabama (January-December 2008) and (January-March 2009). www.adph.org/ aids/assets/HIVandAIDSReport4thQuarter2008Demo.pdf and www.adph.org/aids/assets/HIV_ AIDSReport1stQuarter2009Demo.pdf. *Some of these figures will likely change as the data are finalized. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 52 State Report | ALABAMA appendix A: Alabama HIV/AIDS epidemiological information DEMOGRAPHICS (RACE/ETHNICITY, GENDER, AGE) HIV/AIDS cases by race Race 2008 cases Cumulative cases Black 70% 63.6% White 22.5% 33.4% Hispanic 3.6% 1.7% 2008 cases Cumulative cases HIV/AIDS cases by gender Gender Male 71% 74.5% Female 29% 25.5% HIV/AIDS cases by age Age bracket 2008 cases Cumulative cases Pediatric (<13) 0.36% 0.8% 13-24 21% 13.5% 25-34 26.6% 34.7% 35-44 24% 30.7% 45-49 12% 9.2% 50+ 16% 11% Percentages may not add to 100% due to rounding. Source: Alabama Department of Public Health. HIV and AIDS Cases by Demographic Group and Exposure Category, Alabama (January-March 2009). www.adph.org/aids/assets/HIV _AIDSReport1stQuarter2009Demo.pdf. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 53 State Report | ALABAMA appendix A: Alabama HIV/AIDS epidemiological information PRIMARY EXPOSURE CATEGORY New HIV/AIDS cases across time by primary exposure category Year New HIV/AIDS cases reporting MSM as primary exposure category New HIV/AIDS cases reporting heterosexual sex as primary exposure category 2005 37.6% 25.4% 2006 34.8% 38.9% 2007 38.6% 34.3% Cumulative HIV/AIDS cases by primary exposure category HIV/AIDS cases by primary risk factor for exposure (as of 3/31/09) Cumulative total MSM 41.4% Heterosexual sex 28.5% IDU 11.1% MSM and IDU 5.6% Other 12.6% MSM 41% OTHER 13% IDU 11% MSM & IDU 6% HETEROSEXUAL SEX 29% Source: Primary exposure category statistics from the Alabama Department of Public Health. HIV and AIDS Cases by Demographic Group and Exposure Category, Alabama (JanuaryDecember 2006), (January-December 2007), (January-December 2008) and (January-March 2009). www.adph.org/aids/assets/HIVandAIDSReport2006CompleteDemo.pdf, www. adph.org/aids/assets/HIV_AIDSReportFourthQuarter2007Demo.pdf, www.adph.org/aids/ assets/HIVandAIDSReport4thQuarter2008Demo.pdf, and www.adph.org/aids/assets/HIV_ AIDSReport1stQuarter2009Demo.pdf. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 54 State Report | ALABAMA appendix A: Alabama HIV/AIDS epidemiological information GEOGRAPHIC DISTRIBUTION Geographic distribution 2006 AIDS cases occurring among residents of rural areas (<50,000 people) Alabama 20% Southern region 10% United States 7% Source: Centers for Disease Control and Prevention. Cases of HIV Infection and AIDS in Urban and Rural Areas of the United States, 2006. HIV/AIDS Surveillance Supplemental Report, Vol. 13, No. 2. www.cdc.gov/hiv/topics/surveillance/resources/reports/2008supp_vol13no2/default.htm. Alabamians living with HIV in rural areas 16% Alabamians living with AIDS in rural areas 19% Alabamians living with HIV in Jefferson County ~33% Source: Centers for Disease Control and Prevention. HIV/AIDS Surveillance Report: Cases of HIV Infection and AIDS in the United States and Dependent Areas, 2006. Vol. 18, Table 12. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 55 State Report | ALABAMA appendix B: Alabama HIV/AIDS cases by PHA and county 2008 INCIDENCE RATES OF HIV/AIDS IN THE PHAs OF ALABAMA BY PHA (Incident HIV and AIDS reflects cases whose first known HIV diagnosis or AIDS diagnosis occurred during the specified time period.) PHA Counties included Incidence (new cases per 100,000 people per year) I Colbert Franklin Lauderdale Marion Walker Winston 4.36 II Cullman Jackson Lawrence Limestone Madison Marshall Morgan 13.86 III Bibb Fayette Greene Lamar Pickens Tuscaloosa 15.39 IV Jefferson 31.50 V Blount Cherokee Dekalb Etowah Shelby St. Clair 6.47 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 56 State Report | ALABAMA appendix B: Alabama HIV/AIDS cases by PHA and county PHA Counties included VI Incidence (new cases per 100,000 people per year) Calhoun Chambers Clay Cleburne Coosa Randolph Talladega Tallapoosa 9.36 VII Choctaw Dallas Hale Lowndes Marengo Perry Sumter Wilcox 21.92 VIII Autauga Bullock Chilton Elmore Lee Montgomery Russell 32.08 IX Baldwin Butler Clarke Conecuh Covington Escambia Monroe Washington 9.11 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 57 State Report | ALABAMA appendix B: Alabama HIV/AIDS cases by PHA and county PHA Counties included Incidence (new cases per 100,000 people per year) X Barbour Coffee Crenshaw Dale Geneva Henry Houston Pike 19.16 Mobile 24.16 XI alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 58 State Report | ALABAMA appendix B: Alabama HIV/AIDS cases by PHA and county 2008 INCIDENCE RATES OF HIV IN THE PHAs OF ALABAMA BY INCIDENCE LEVEL PHA Counties included Incidence (new cases per 100,000 people per year) VIII Autauga Bullock Chilton Elmore Lee Montgomery Russell 32.08 IV Jefferson 31.50 XI Mobile 24.16 VII Choctaw Dallas Hale Lowndes Marengo Perry Sumter Wilcox 21.92 X Barbour Coffee Crenshaw Dale Geneva Henry Houston Pike 19.16 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 59 State Report | ALABAMA appendix B: Alabama HIV/AIDS cases by PHA and county PHA Counties included Incidence (new cases per 100,000 people per year) III Bibb Fayette Greene Lamar Pickens Tuscaloosa 15.39 II Cullman Jackson Lawrence Limestone Madison Marshall Morgan 13.86 VI Calhoun Chambers Clay Cleburne Coosa Randolph Talladega Tallapoosa 9.36 IX Baldwin Butler Clarke Conecuh Covington Escambia Monroe Washington 9.11 alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 60 State Report | ALABAMA appendix B: Alabama HIV/AIDS cases by PHA and county PHA Counties included Incidence (new cases per 100,000 people per year) V Blount Cherokee Dekalb Etowah Shelby St. Clair 6.47 I Colbert Franklin Lauderdale Marion Walker Winston 4.36 Source: Alabama Department of Public Health. HIV and AIDS Cases by Public Health Area and County, Alabama (January-March 2009). www.adph.org/aids/assets/HIV_AIDSReport1stQuarter2009PHA.pdf. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 61 State Report | ALABAMA appendix C: Map of Alabama counties Lauderdale Limestone Jackson Madison Colbert Lawrence Franklin De Kalb Morgan Marshall Marion Cherokee Cullman Winston Etowah Blount Walker Fayette Lamar Calhoun St. Clair Cleburne Jefferson Talladega Shelby Tuscaloosa Pickens Randolph Clay ALABAMA Bibb Coosa Greene Hale Perry Elmore Autauga Sumter Marengo Lee Macon Dallas Choctaw Chambers Tallapoosa Chilton Montgomery Russell Lowndes Bullock Wilcox Pike Butler Clarke Barbour Crenshaw Monroe Henry Conecuh Washington Coffee Dale Covington Escambia Geneva Houston Mobile Baldwin alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 62 State Report | ALABAMA appendix D: Alabama Medicaid covered/noncovered services COVERED SERVICES Service Coverage details Ambulance servicesMedicaid pays for ambulance services only when medically necessary. Dental services (for children under 21 years of age) Medicaid pays for a check-up and teeth cleaning every 6 months. Medicaid pays for some crowns, extractions (pulling teeth), fillings, root canals, TMJ surgery, and x-rays. Some services must be approved by Medicaid ahead of time. Doctor servicesMedicaid pays for 14 doctor visits per calendar year. These include visits to the doctor’s office, emergency room (unless it is a certified emergency), healthcare clinics, and centers. Medicaid also pays for 16 days of doctor’s care when a patient is in a hospital. Eye care services (for adults) Medicaid pays for eye exams and eyeglasses once every 2 calendar years for recipients 21 years of age or older. Contact lenses may be provided only under certain conditions and when approved ahead of time. Eye care services (for children under 21 years of age) Medicaid pays for eye exams and glasses once every calendar year. Additional covered services may be available if medically necessary. Family planning servicesFamily planning services are available to women of childbearing age and men of any age. Birth control methods covered by Medicaid include birth control pills, IUDs, diaphragms, shots, and implants. Medicaid pays for women 21 years of age and older to have their tubes tied and vasectomies for men 21 years of age and older. Consent forms must be signed at least 30 days before the surgery. NOTE: Family planning services do not count against regular doctor’s office visits. Preventive health education services Medicaid pays for classes on preparing for childbirth and preventing teenage pregnancy. Hospitals, county health departments, and other groups offer these classes. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 63 State Report | ALABAMA appendix D: Alabama Medicaid covered/noncovered services Hearing services (for children under 21 years of age) Medicaid pays for one hearing screening every calendar year beginning at 5 years of age and for hearing aids. Additional covered services may be available if medically necessary. Home health servicesMedicaid provides for certain medical services at home if the patient has an illness, disability, or injury that keeps him/her from leaving home without special equipment or the help of another person. Services can be part-time or off and on during a certain span of time. Certain medical supplies, equipment, and appliances that can be used in the home are also covered with some limits. Hospice servicesMedicaid pays for hospice care for terminally ill persons. There is no limit on hospice days. Covered hospice services include nursing care, medical social services, doctors’ services, short-term inpatient hospital care, medical appliances and supplies, medicines, home health aide and homemaker services, therapies, counseling services, and nursing home room and board. Hospital services1. In-patient hospital care–Medicaid pays for 16 in-patient hospital days per calendar year. Coverage is for a semiprivate room (2 or more beds in a room). In certain hospitals, nursing home care services are provided to Medicaid patients who are waiting to go into a nursing home. 2. Outpatient care–Medicaid pays for 3 nonemergency outpatient hospital visits per calendar year. Examples of nonemergencies include upset stomach, sore throat, mild cough, rash, and low-grade fever. There are no limits on outpatient hospital visits if a patient goes in for laboratory work, x-ray services, radiation treatment, or chemotherapy only. Medicaid pays for 3 outpatient surgical procedures per calendar year if the surgeries are done in an ambulatory surgical center. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 64 State Report | ALABAMA appendix D: Alabama Medicaid covered/noncovered services ospital services H (cont’d) Medicaid also pays for emergency outpatient services when there is a certified emergency. OTE: A noncertified outpatient emergency room visit counts N as 1 doctor visit and 1 outpatient visit. . Psychiatric hospital services–Medicaid pays for 3 medically necessary services in a psychiatric hospital for children under 21 years of age if approved by Medicaid ahead of time. Laboratory and x-ray services Medicaid pays for laboratory and x-ray services when they are medically necessary. Maternity servicesMedicaid pays for prenatal (before the baby is born) care, delivery, and postpartum (after the baby is born) care. Medicaid also pays for prenatal vitamins. Mental health servicesMedicaid pays for treatment of people diagnosed with mental illness or substance abuse. The treatment is provided through community mental health centers for eligible children and adults, and through the Department of Human Resources (DHR) and the Department of Youth Services (DYS) for children under 21 years of age being served by DHR and DYS. NOTE: The services received from a mental health center do not count against regular doctor’s office visits or other Medicaid covered services. Nurse midwife servicesMedicaid covers nurse midwife services for maternity care, delivery, routine gynecology services, and family planning services. Nursing home care services Medicaid pays for nursing home room and board, prescribed medicines, and 14 doctor’s visits per calendar year while the beneficiary is in a nursing home. In certain hospitals, nursing home care services are provided to Medicaid patients who are waiting to go into a nursing home, if they meet the guidelines for nursing home care. Medicaid also pays for long-term care for mentally retarded persons. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 65 State Report | ALABAMA appendix D: Alabama Medicaid covered/noncovered services Out-of-state servicesServices that Medicaid covers in Alabama may be covered out-of-state if: • the patient has a certified emergency, • it would be hazardous to have to travel back to Alabama for treatment, • the medical services needed are more readily available in the other state, or • an out-of-state medical provider has a contract with Medicaid in Alabama. NOTE: The medical provider must agree to enroll as a provider with the Alabama Medicaid Agency. Some services must be approved before the service can be given by an out-of-state provider. Prescription drugsMedicaid pays for most medicines ordered by the patient’s doctor. Many over-the-counter drugs are also covered. There are some drugs that must be approved by Medicaid ahead of time. For most recipients, Medicaid only pays for 4 brand-name drugs each month. Generic and covered drugs are not limited. Renal dialysis servicesMedicaid pays for 156 outpatient dialysis treatments per calendar year for recipients with kidney failure. Medicaid also pays for certain drugs and supplies. Transplant servicesMedicaid pays for some organ transplants. If a transplant is needed, the recipient’s doctor will work directly with Medicaid to arrange for the transplant. Home and community- based waivers Medicaid pays for services for certain disabled clients who prefer to stay in their home rather than be admitted to a nursing home. Transportation . Ambulance services–Medicaid pays for ambulance 1 services only when medically necessary. Medicaid will not pay for an ambulance service if another means of transportation can be used without harming the health of the patient. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 66 State Report | ALABAMA appendix D: Alabama Medicaid covered/noncovered services Transportation (cont’d)2. Nonemergency services–The Medicaid NET Program is set up to help cover the cost of transportation to and from medically necessary appointments if Medicaid recipients have no other way to get to their appointments without obvious hardship. Medicaid issues vouchers for these medically necessary appointments. These vouchers should be approved by Medicaid ahead of time. NONCOVERED SERVICES Below is a partial listing of some goods and services that are not covered by Medicaid in Alabama. • Cosmetic surgery or procedures • Dental services for adults (age 21 and older) • Dental services for pregnant women who are eligible for pregnancy-related services only • Dental services, such as routine orthodontic care (braces), routine partials, dentures or bridgework, gold caps or crowns, or periodontal or gum surgery • Hearing services for adults (age 21 and older) • Hospital meal trays or cots for guests • T V rentals and VCRs in hospital rooms • Infertility services or treatment • Recreational therapy or experimental treatments, supplies, equipment, or drugs • Respiratory therapy, speech therapy, and occupational therapy (age 21 and older) • Services or treatment if a person is not eligible for Medicaid • Services to persons who are in jail or in prison • Sitter services • Any service not covered under the State Plan for Medical Assistance Source: Alabama Medicaid Agency. Your Guide to Alabama Medicaid. www.medicaid.state.al.us/documents/ Resources/4-G_Publications/4G-1_YourGuideToMedicaid.11-08.pdf. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 67 State Report | ALABAMA appendix E: 2009 Federal Poverty Guidelines THE 2009 POVERTY GUIDELINES FOR THE 48 CONTIGUOUS STATES AND THE DISTRICT OF COLUMBIA Persons in family Poverty guideline 1 $10,830 2 $14,570 3 $18,310 4 $22,050 5 $25,790 6 $29,530 7 $33,270 8 $37,010 or families with more than 8 persons, add $3,740 F for each additional person. Source: United States Department of Health and Human Services, http://aspe.hhs.gov/POVERTY/09poverty.shtml. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 68 State Report | ALABAMA notes and references 1.Information obtained from: Centers for Disease Control and Prevention, Cases of HIV Infections and AIDS in the United States and Dependent Areas, 2007, Table 16, HIV/AIDS Surveillance Report, vol. 19, 2009, http://www.cdc. gov/hiv/topics/surveillance/resources/reports/2007report/default.htm. 2.Id., Table 18. 3.Id., Table 14. 4.Id., Table 11. 5.Id., Table 16. 6.The Kaiser Family Foundation, statehealthfacts.org. Data Source: Centers for Disease Control and Prevention, Division of HIV/AIDS Prevention-Surveillance and Epidemiology, Special Data Request, February 2009, http://www.statehealthfacts.org/profileind.jsp?ind=525&cat=11&rgn=2. 7.Information obtained from: Alabama Department of Public Health, Alabama HIV and AIDS Quarterly Statistics, “HIV and AIDS Cases by Demographic Group and Exposure Category, Alabama (January-December 2008) and (January-March 2009),” http://www.adph.org/aids/assets/HIVandAIDSReport4thQuarter2008Demo.pdf and http://www.adph.org/aids/assets/HIV_AIDSReport1stQuarter2009Demo.pdf. 8.Demographic statistics from the Alabama Department of Public Health, Alabama HIV and AIDS Quarterly Statistics, “HIV and AIDS Cases by Demographic Group and Exposure Category, Alabama (January-March 2009),” http://www.adph.org/aids/assets/HIV_AIDSReport1stQuarter2009Demo.pdf. 9.Exposure category statistics from the Alabama Department of Public Health, Alabama HIV and AIDS Quarterly Statistics, “HIV and AIDS Cases by Demographic Group and Exposure Category, Alabama (January-December 2006, 2007, 2008) and (January-March 2009),” http://www.adph.org/aids. 10.Information obtained from: Centers for Disease Control and Prevention, HIV/AIDS Surveillance Supplemental Report, Volume 13, Number 2, Cases of HIV Infection and AIDS in Urban and Rural Areas of the United States, 2006, released December 2008, http://www.cdc.gov/hiv/topics/surveillance/resources/reports/2008supp_ vol13no2/default.htm. 11.Information obtained from: Centers for Disease Control and Prevention, HIV/AIDS Surveillance Report: Cases of HIV Infection and AIDS in the United States and Dependent Areas, 2006, Volume 18, Table 12, http://www.cdc. gov/hiv/topics/surveillance/resources/reports/2006report/default.htm. 12.Funding statistics from The Kaiser Family Foundation, statehealthfacts.org. Data Source: National Alliance of State and Territorial AIDS Directors (NASTAD) at http://www.nastad.org, Special Data Request, 2008, http://www. statehealthfacts.org/profileind.jsp?ind=528&cat=11&rgn=2. 13.Information obtained from: US Department of Commerce, Bureau of Economic Analysis. 14.Information obtained from: Alabama Department of Industrial Relations, Occupation and Industry Projections, http://www2.dir.state.al.us/Projections/. 15.Information obtained from: US Department of Commerce, Bureau of Economic Analysis. 16.Information obtained from: US Department of Commerce, Bureau of Economic Analysis, State BEARFACTS 1 997-2007, http://www.bea.gov/regional/bearfacts/stateaction.cfm. 17.Information obtained from: United States Census Bureau, State and County QuickFacts, http://quickfacts. census.gov. 18.The Kaiser Family Foundation, statehealthfacts.org. Data Source: Table 1, Annual Statistical Report on the Social Security Disability Insurance Program, 2007, Social Security Administration, Office of Policy, SSI Recipients by State and County, 2007, http://www.statehealthfacts.org/profileind.jsp?ind=255&cat=4&rgn=2. 19.Information obtained from: Alabama Department of Industrial Relations, Labor Market Information Division, http://dir.alabama.gov; http://www2.dir.state.al.us/; US Department of Labor, Bureau of Labor Statistics, http://data.bls.gov/. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 69 State Report | ALABAMA notes and references 20.Information obtained from: Economic Research Service, US Department of Agriculture, State Fact Sheets, http://www.ers.usda.gov/StateFacts/AL.htm. 21.Data from US Census Bureau, American FactFinder and Census QuickFacts, http://factfinder.census.gov and http://quickfacts.census.gov/qfd/states/01000.html. 22.We capitalize the names of racial and ethnic groups here because that is the convention used by the US Census Bureau. 23.The Kaiser Family Foundation, statehealthfacts.org. Data Source: Urban Institute and Kaiser Commission on Medicaid and the Uninsured estimates based on the Census Bureau’s March 2007 and 2008 Current Population Survey (CPS: Annual Social and Economic Supplements), http://www.statehealthfacts.org/profileind. jsp?ind=3&cat=1&rgn=2. 24.Information obtained from: US Department of Agriculture, Economic Research Service, State Fact Sheets, http://www.ers.usda.gov/StateFacts/AL.htm. 25.Id. 26.Id. 27.Id. 28.Id. 29.Id. 30.Information obtained from: US Census Bureau, State & County QuickFacts, http://quickfacts.census.gov/qfd/ states/01000.html. 31.Alabama Constitution of 1901, Article V, section 112. 32.Information obtained from: Office of Governor Bob Riley Web site, http://governor.alabama.gov/cabinet.aspx, accessed May 18, 2009. 33.Information obtained from the Alabama Legislature Web site, http://www.legislature.state.al.us, and Wikipedia, “Constitution of Alabama,” http://en.wikipedia.org/wiki/Alabama_Constitution, accessed May 18, 2009. 34.Blalock B. Alabamians should show outrage over Legislature refusing to let voters decide on convention of citizens to write new constitution. The Birmingham News. May 10, 2009. http://blog.al.com/bblalock/2009/05/alabamians_ should_show_outrage.html. 35.See, eg, “Lawsuit questions validity of Alabama Constitution,” The Birmingham News, February 13, 2009, http://blog.al.com/bn/2009/02/constitution_challenge.html, “Lawsuit Alleges Alabama Constitution Racist, Invalid,” American Constitutional Society, ACSblog, February 16, 2009, http://www.acslaw.org/node/12934. 36.Health insurance statistics from The Kaiser Family Foundation, statehealthfacts.org. Data Source: Urban Institute and Kaiser Commission on Medicaid and the Uninsured estimates based on the Census Bureau’s March 2007 and 2008 Current Population Survey (CPS: Annual Social and Economic Supplements), http://www.statehealthfacts. org/profileind.jsp?ind=125&cat=3&rgn=2. 37.Information obtained from: The Kaiser Family Foundation, statehealthfacts.org. Data as of December 2008, compiled through review of state laws and regulations and interviews with state health insurance regulatory staff, http://www.statehealthfacts.org/profileind.jsp?rgn=2&cat=7&ind=353. 38.Information obtained from: phone calls to Alfa Blue Cross and Assurant Health, 12/11/08. 39.Death and birth rate statistics from The Kaiser Family Foundation, statehealthfacts.org. 40.Information obtained from: Alabama Department of Public Health, Center for Health Statistics, Division of Statistical Analysis, Alabama Vital Statistics 2007, http://www.adph.org/healthstats/. 41.The Kaiser Family Foundation, statehealthfacts.org. Data Source: The Centers for Disease Control and Prevention (CDC), National Center for Health Statistics, Division of Vital Statistics, National Vital Statistics Report, Volume 57, Number 14, April 2009, Table 29, http://www.statehealthfacts.org/profileind.jsp?ind=77&cat=2&rgn=2. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 70 State Report | ALABAMA notes and references 42.Id. 43.Information obtained from: Alabama Department of Public Health, Healthcare Facilities Directory. http://ph.state.al.us/ facilitiesdirectory/. 44.The Kaiser Family Foundation, statehealthfacts.org. Data Sources: Bureau of Labor Statistics, State Occupational Employment and Wage Estimates, May 2008, http://www.statehealthfacts.org/profileind.jsp?ind=438&cat=8&rgn=2; and calculations based on the Bureau of Labor Statistics, State Occupational Employment and Wage Estimates, May 2008, and the Annual Population Estimates by State, July 1, 2008 Population, US Census Bureau, http://www. statehealthfacts.org/profileind.jsp?ind=439&cat=8&rgn=2. 45.Id. 46.Information obtained from: Alabama Primary Health Care Association Web site, http://www.alphca.com/dirservice. aspx?id=468. 47.The Kaiser Family Foundation, statehealthfacts.org. Data Sources: Centers for Disease Control and Prevention. Update: Syringe Exchange Programs-United States, 2005. MMWR. 2007;56(44):1164-1167; and Burris S, et al. The Legality of Selling or Giving Syringes to Injection Drug Users. J Am Pharm Assoc. 2002;42(6), Supp.2: S13-18. Accessed August 2005, http://www.statehealthfacts.org/profileind.jsp?ind=566&cat=11&rgn=2. 48.Information obtained from: Centers for Disease Control and Prevention, www.hivtest.org. 49.Information obtained from: Alabama Department of Public Health Web site, http://www.adph.org/aids/. 50.Information obtained from: SHARP Community Partners Meeting, April 9, 2009, Birmingham. 51.Ala. Code §§22-11A-51 and 22-11A-52, and Ala. Admin. Code Chapter 420-4-1-.06. Circumstances under which consent shall be implied include when an individual, based upon reasonable medical judgment, is at high risk for HIV, when medical care may be modified depending on HIV status, and when there is an immediate danger of communication of HIV to attending medical personnel. 52.Ala. Admin. Code Chapter 420-4-1-.14. 53.Information obtained from: Alabama Department of Mental Health and Mental Retardation Web site, http://www. mh.alabama.gov/SA/FindServices.aspx. 54.Ala. Admin. Code r. 560-X-1. 55.The Kaiser Family Foundation, statehealthfacts.org. Data Source: Calculations based on the Urban Institute and Kaiser Commission on Medicaid and the Uninsured estimates based on data from Medicaid Statistical Information System (MSIS) reports from the Centers for Medicare and Medicaid Services (CMS), 2009, http://www.statehealthfacts.org/ profileind.jsp?ind=199&cat=4&rgn=2. This number is different from the percentage cited on page 13 because the percentage on page 13 is derived from the Census Bureau’s Current Population Survey, and reflects a specific “point-in-time” number, while the percentage cited here comes from the Centers for Medicare and Medicaid Services’ Medicaid Statistical Information System, and reflects persons enrolled at any point in the year (including those, such as children, who often cycle on and off Medicaid coverage). Telephone conversation with Lindsay Donaldson, Kaiser Family Foundation, June 5, 2009. 56.However, emergency services are covered for illegal aliens who would be eligible for Medicaid except for the alienage requirement. 57.Ala. Admin. Code 560-X-25. 58.Information obtained from: Alabama Medicaid Agency Web site, http://www.medicaid.state.al.us. 59.“Countable income” is the amount left after taking into account all applicable deductions. 60.Ala. Admin. Code 560-X-25. 61.A complete list of Alabama Medicaid programs is available on the department’s Web site, http://www.medicaid. alabama.gov/programs/index_programs.aspx?tab=4. alabama 62.Some exceptions are dual-eligibles, foster children, and institutionalized beneficiaries. 63.Information obtained from: Alabama Medicaid Agency Web site, http://www.medicaid.alabama.gov/programs/ patient1st/index_patient1st.aspx?tab=4. An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 71 State Report | ALABAMA notes and references 64.20 CFR 416.905. 65.Information obtained from: Alabama Medicaid Agency Web site, http://www.medicaid.alabama.gov/apply/apply_ information.aspx?tab=3. 66.Id. 67.Information obtained from: Alabama Medicaid Agency Web site, http://www.medicaid.alabama.gov/programs/family_ planning/plan_first.aspx?tab=4. 68.Information obtained from: Alabama Medicaid Agency Web site, http://www.medicaid.alabama.gov/apply/apply_ information.aspx?tab=3 with link to Alabama Department of Public Health Web site at http://adph.org/earlydetection/ Default.asp?id=546. 69.Information obtained from: Alabama Medicaid Agency Web site, http://www.medicaid.alabama.gov/. 70.Information obtained from: Alabama Medicaid Agency, “Co-Payments for Medicaid Services,” http://www.medicaid. alabama.gov/programs/program_resources/program_resources.aspx?tab=4 (accessed 3/2/09). 71.Ala. Admin. Code r. 560-X-7-.03. 72.Information obtained from: Alabama Medicaid Agency, “Your Guide to Alabama Medicaid” and “Alabama Medicaid Covered Services and Co-payments,” http://www.medicaid.alabama.gov/programs/program_resources/program_ resources.aspx?tab=4 (accessed 3/2/09). 73.Medicare also covers people who have Lou Gehrig’s disease or end-stage renal disease. 74.The Kaiser Family Foundation, statehealthfacts.org. Data Source: CMS Statistics: Medicare State Enrollment, Centers for Medicare and Medicaid Services, http://www.statehealthfacts.org/profileind.jsp?ind=293&cat=6&rgn=2. 75.Ala. Admin. Code r. 560-X-1-.14 (2000). 76.Ala. Admin. Code r. 560-X-1, 25. 77.Information obtained from: Alabama Medicaid Agency Web site, http://www.medicaid.alabama.gov/. 78.Information obtained from: Health Insurance Alabama Web site, http://healthinsurance.alabama.gov/unins_children. htm (accessed 3/2/09). 79.Information obtained from: Alabama Department of Public Health Web site, http://www.adph.org/allkids/ (accessed 3/2/09). 80.Information obtained from: Alabama Department of Public Health Web site, ALL Kids Enrollment Data, http://www. adph.org/allkids/Default.asp?id=580 (accessed 3/2/09). 81.Information obtained from: The Alabama Child Caring Foundation, http://www.accf.net/. 82.The Kaiser Family Foundation, statehealthfacts.org. Data Source: National Alliance of State and Territorial AIDS Directors (NASTAD) at http://www.nastad.org, Special Data Request, 2008, http://www.statehealthfacts.org/ profileind.jsp?ind=535&cat=11&rgn=2. 83.Information obtained from: Alabama Department of Public Health Web site, http://www.adph.org/aids/index. asp?id=995 (accessed 8/26/09). 84.Information obtained from: telephone conversation with Gloria Sims, Alabama Department of Public Health ADAP Coordinator, August 26, 2009. 85.Information obtained from: Alabama Department of Public Health Web site, http://www.adph.org/aids/assets/ MEDCAPGuidance2009.pdf (accessed 8/26/09). 86.Information obtained from: telephone conversation with Gloria Sims, Alabama Department of Public Health ADAP Coordinator, August 26, 2009. 87.Information obtained from: electronic mail correspondence with Gloria Sims, Alabama Department of Public Health ADAP Coordinator, August 26, 2009. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 72 State Report | ALABAMA notes and references 88.Id. and Alabama Department of Public Health Web site, http://www.adph.org/aids/index.asp?id=995, (accessed 8/2609). 89.Information obtained from: Alabama Department of Public Health Web site, http://www.adph.org/aids/assets/ ADAPFormularyRevised11-08.pdf (accessed 8/26/09). 90.Id. 91.Information obtained from: National ADAP Monitoring Project Annual Report, April 2009, http://www.kff.org/hivaids/ upload/7861.pdf. Note that the ADAP fiscal year runs from April 1 to March 31 of the following year (so FY08 is April 1, 2008-March 31, 2009), unlike the general federal fiscal year, which runs from October 1 to September 30 of the following year. 92.Id. 93.Id. 94.Information obtained from: http://www.legislature.state.al.us/CodeofAlabama/1975/coatoc.htm. 95.Alabama Code 13A-5-12, http://www.legislature.state.al.us/CodeofAlabama/1975/coatoc.htm. 96.Ala. Code §22-11A-18 and Ala. Admin. Code Ch. 420-4-1-.05. 97.Information obtained from: SHARP Community Partners Meeting, April 9, 2009, Birmingham. 98.Information obtained from: Guttmacher Institute, State Policies in Brief: Sex and STI/HIV Education, http://www. guttmacher.org/statecenter/spibs/spib_SE.pdf. 99.Ala. Admin. Code r. 560-X-1-.04 (1993); Ala. Admin. Code r. 560-X-25-.03(1)(h) (2004). 100.Information obtained from: Alabama Medicaid Agency, A Medicaid Primer, February 2009, p. 7, http://www. medicaid.alabama.gov/documents/apply/2A-General/2A-4_What_is_Medicaid_2-13-09.pdf. 101.The Kaiser Family Foundation, statehealthfacts.org. Data Sources: Challenges of Providing Health Coverage for Children and Parents in a Recession: A 50 State Update on Eligibility Rules, Enrollment and Renewal Procedures, and Cost-Sharing Practices in Medicaid and SCHIP in 2009. Data based on a national survey conducted by the Center on Budget and Policy Priorities for the Kaiser Commission on Medicaid and the Uninsured, January 2009, http://www.statehealthfacts.org/comparetable.jsp?ind=205&cat=4. 102.Information obtained from: SSA Web site, http://www.ssa.gov/disability/professionals/bluebook/14.00Immune-Adult.htm#14_08. 103.Ala. Admin. Code r. 560-X-6-.14(1) (2005); Ala. Admin. Code r. 560-X-7-.01 (2004); Ala. Admin. Code r. 560-X-6-.13(13)(a) (2005). 104.Information obtained from: Alabama Medicaid Agency, A Medicaid Primer, February 2009, p. 7, http://www. medicaid.alabama.gov/documents/apply/2A-General/2A-4_What_is_Medicaid_2-13-09.pdf. 105.Information obtained from: SHARP Community Partners Meeting, Provider session, November 17, 2008, Birmingham. 106.Information obtained from: Alabama Medicaid Agency Web site, http://www.medicaid.alabama.gov/programs/ pharmacy_svcs/pref_drug_list.aspx. 107.Information obtained from: Alabama Medicaid Agency, Medicaid Provider Manual, Appendix G, http://www.medicaid. alabama.gov/documents/Billing/5-G_Manuals/5G-2_Provider.Manual_Jan.2009/Jan09_G.pdf. 108.Information obtained from: SHARP Community Partners Meeting, Consumer session, November 17, 2008, Birmingham. 109.Information obtained from: Alabama Medicaid Agency Web site, http://www.medicaid.alabama.gov/billing/provider_ manual.10-08.aspx?tab=6 and http://www.medicaid.alabama.gov/documents/3L-3-d-Questions.Answer.Recipients. pdf (accessed 2/27/09). alabama 110.Information obtained from: SHARP Community Partners Meeting, April 9, 2009, Birmingham. Community partners also noted that a similar “one provider only” policy has been adopted within the Ryan White Part B program in Alabama, and that this policy creates significant administrative burdens for service providers. An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 73 State Report | ALABAMA notes and references 111.Information obtained from: Alabama Medicaid Agency, “FMAP increase, Health IT funds on stimulus wish list,” http://www.medicaid.alabama.gov/documents/News/Federal_Stimulus.pdf. 112.The Kaiser Family Foundation, statehealthfacts.org. Data Sources: The United States Government Accountability Office and Center on Budget and Policy Priorities (for Territory estimates), February 19, 2009, http://www. statehealthfacts.org/comparemaptable.jsp?cat=4&ind=664&typ=4&gsa=1. 113.Information obtained from: SHARP Community Partners Meeting, April 9, 2009, Birmingham. Another reason given by SHARP partners is that the Elderly/Disabled Medicaid home care waiver used to offer better coverage than the HIV waiver, so participants opted to enroll in the Elderly/Disabled program. The HIV/AIDS waiver now offers the same benefits. 114.Medical disenfranchisement can be calculated by considering the number of people who live in Health Professional Shortage Areas and Medically Underserved Areas, as designated by the federal Health Resources and Services Administration. The National Association of Community Health Centers and The Robert Graham Center, Access Denied: A Look at America’s Medically Disenfranchised, pp. 2, 3 and Appendix F (2007). 115. Id., pp. 3 and Appendix A. 116.Information obtained from: Ann DeBellis. A Physician Shortage – The Looming Crisis. Birmingham Medical News, June 2008, at 4, http://birmingham.medicalnewsinc.com/mod/secfile/viewed.php?file_id=31. 117.Information obtained from: http://aahivm.org/index.php?option=com_content&task=view&id=736&Itemid=144. 118.Information obtained from: SHARP Community Partners Meeting, Provider session, November 17, 2008, Birmingham. 119.Id. 120.Id. 121.Id. 122.Information obtained from: Ann DeBellis. A Physician Shortage – The Rural Crisis. Birmingham Medical News, August 2008, at 6, http://birmingham.medicalnewsinc.com/mod/secfile/viewed.php?file_id=33. 123.Information obtained from: SHARP Community Partners Meeting, Provider session, November 17, 2008, Birmingham. 124.Id. 125.Information obtained from: SHARP Community Partners Meeting, Provider session, November 2008, Birmingham. 126.See, eg, Ding L. et al. The Quality of Care Received by HIV Patients Without a Primary Provider, 20 AIDS Care 1, 35-42 (2008). 127.See, eg, Fisher JD et al. Clinician-delivered intervention during routine clinical care reduces unprotected sexual behavior among HIV-infected patients. J Acquir Immune Defic Syndr. 2006, Jan, 41(1):44-52; and Richardson JL et al. Effect of brief safer-sex counseling by medical providers to HIV-1 seropositive patients: a multi-clinic assessment, AIDS. 2004 May, 18(8):1179-86. 128.Information obtained from: SHARP Community Partners Meeting, Provider session, November 17, 2008, Birmingham. 129.Information obtained from: AAP Medicaid Reimbursement Survey 2007/2008, http://74.125.47.132/search?q=cache:AOApcJ0hvB8J:www.aap.org/research/medreimpdf0708/ al.pdf+medicaid+reimbursement+alabama&hl=en&ct=clnk&cd=3&gl=us&client=firefox-a. 130.Ala. Code of 1975 §40-18-132. 131.Information obtained from: SHARP Community Partners Meeting, April 9, 2009, Birmingham. 132.Information obtained from: National Health Service Corps Web site, http://nhsc.hrsa.gov/join_us/lrp.asp. alabama 133.Information obtained from: SHARP Community Partners Meeting, April 9, 2009, Birmingham. An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 74 State Report | ALABAMA notes and references 134.Information obtained from: Sharon Christian et al. Overview of Nurse Practitioner Scope of Practice in the United States – Discussion, The Center for the Health Professions 6 (2007), http://futurehealth.ucsf.edu/pdf_files/NP percent20Scopes percent20discussion percent20Fall percent202007 percent20121807.pdf. 135.Ala. Admin. Code r. 610-X-5.02(c), http://www.abn.state.al.us/main/downloads/admin-code/Chapter percent20610-X-5.pdf. 136.Ala. Admin. Code r. 610-X-5.08, http://www.abn.state.al.us/main/downloads/admin-code/Chapter percent20610-X-5.pdf. 137.Rules of the Alabama Board of Medical Examiners, Chapter 540-X-7-.01. 138.Summaries for Patients: Quality of Health Care Provided by Nurse Practitioners, Physician Assistants, and Doctors. 143 Annals of Internal Med. 10, I72 (2005). Ira B. Wilson et al. Quality of HIV Care Provided by Nurse Practitioners, Physician Assistants, and Physicians. 143 Annals of Internal Med. 10, 729-36 (2005). 139.According to the Board of Medical Examiners, “there are several initiatives with the Board of Nursing to streamline the [collaborative practice] process and make it more user friendly.” Alabama BME Newsletter and Report, JanuaryMarch 2009, Vol. 24, No. 1, http://www.albme.org/Documents/Newsletters/BME2009-01.PDF. 140.Information obtained from: Alabama State Nurses Association, ASNA Legislative Update 09-2, February 2009, http://www.alabamanurses.org/associations/9886/files/LEGISLATIVEUPDATE09-2.pdf (accessed 2/25/09). 141.Lugo N et al. Ranking State NP Regulation: Practice Environment and Consumer Healthcare Choice, Am J Nurse Pract. April 2007, Vol. 11 No. 4. 142.American Academy of Physician Assistants, Issue Brief: Physician Assistant Scope of Practice, http://www.aapa.org/ gandp/issuebrief/pascope.pdf (accessed 2/25/09). 143.American Academy of Physician Assistants, Summary of State Laws for Physician Assistants: Abridged Version, http://www.aapa.org/gandp/statelaw.html (accessed 2/25/09). 144.Ala. Admin. Code r. 20-2-1 et. seq. 145.Information obtained from: Alabama Society of Physician Assistants Web site, Legislative News, http://www.myaspa. org/legislativenews.php (accessed 2/25/09). 146.Sharon Christian et al. Overview of Nurse Practitioner Scope of Practice in the United States – Discussion, The Center for the Health Professions 11 (2007), http://futurehealth.ucsf.edu/pdf_files/NP percent20Scopes percent20discussion percent20Fall percent202007 percent20121807.pdf. 147.Information obtained from: Alabama Society of Physician Assistants Web site, http://www.myaspa.org/ legislativenews.php (accessed 2/25/09). 148.Information obtained from: Alabama Society of Physician Assistants Web site, http://www.myaspa.org/ (accessed May 20, 2009). 149.Information obtained from: MASA Web site, http://www.masalink.org/alapac/news.aspx?id=2090 (accessed May 20, 2009). 150.Sharon Christian et al. Overview of Nurse Practitioner Scope of Practice in the United States – Discussion, The Center for the Health Professions 12 26 (2007). http://futurehealth.ucsf.edu/pdf_files/NP percent20Scopes percent20discussion percent20Fall percent202007 percent20121807.pdf. 151.Information obtained from: Alabama State Nurses Association, ASNA Legislative Update 09-2, February 2009, http://www.alabamanurses.org/associations/9886/files/LEGISLATIVEUPDATE09-2.pdf (accessed 2/25/09). 152.Information obtained from: Alabama Medical PAC Web site, “Nurse Practitioners to Seek Medical Independence,” January 21, 2008, http://www.masalink.org/alapac/news.aspx?id=1002. 153.Information obtained from: SHARP Community Partners Meeting, April 9, 2009, Birmingham. 154.Ala. Code of 1975 §34-24-53. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 75 State Report | ALABAMA notes and references 155.Information obtained from: “A Proposal to Increase the Utilization of Nurse Practitioners in Underserved Alabama,” prepared by the Nurse Practitioner Taskforce at the Request of Dr. Robert Bentley, House of Representatives, District 63, April 7, 2007, http://www.arhaonline.org/PDF%20Files/NPTFreport.pdf. 156.Ala. Code of 1975, §34-21-81. 157.Information obtained from: K. Heins and A. Heins, “Plan to Improve the Health and Health Care of the People of Alabama at Lower Cost,” http://www.npalliancealabama.org/. 158.Information obtained from: Susanne J. Phillips, 18th Annual Legislative Update, 32 The Nurse Practitioner 1 (2006). 159.Information obtained from: Blue Cross Blue Shield of Alabama Web site, https://www.bcbsal.org/providers/ publications/specialBulletins/archiveSpecial/2004-21.pdf. 160.Information obtained from: SHARP Community Partners Meeting, April 9, 2009, Birmingham. 161.Information obtained from: SHARP Community Partners Meeting, Provider session, November 17, 2008, Birmingham. 162.Information obtained from: Alabama Department of Revenue, Annual Report 2007, 3. http://www.ador.state.al.us/, hereinafter ADR Annual Report; State Tax Collections per capita, 2007, http://www.taxfoundation.org/research/ show/289.html. 163.The Kaiser Family Foundation, statehealthfacts.org. Data Source: State Government Tax Collections: 2008, US Bureau of the Census, http://www.statehealthfacts.org/comparemaptable.jsp?ind=762&cat=1. 164.Information obtained from: Alabama Legislative Fiscal Office, Presentation to the Legislature for Budget Hearings, Jan. 12, 2009 (hereinafter LFO Presentation). 165.See The Tax Foundation, The Facts on Alabama’s Tax Climate, http://www.taxfoundation.org/research/topic/10.html; and Center on Budget and Policy Priorities, The Impact of State Income Taxes on Low-income Families in 2007, Oct. 29, 2008. 166.Information obtained from: LFO Presentation; Alabama Legislative Fiscal Office, State General Fund Comparison Sheet. 167.Information obtained from: LFO Presentation. 168.Information obtained from: Center on Budget and Policy Priorities, The Impact of State Income Taxes on Low-income Families in 2007, Oct. 29, 2008. 169.“Another study (yawn) shows that Alabama has a low tax burden.” The Birmingham News. August 15, 2008. Citing Institute for Tax and Economic Policy Report. 170.Information obtained from: N. Siniavskaia, “Residential Real Estate Tax Rates in the American Community Survey,” HousingEconomics.com, National Association of Home Builders, May 22, 2007, http://www.nahb.org/fileUpload_ details.aspx?contentTypeID=3&contentID=76984&subContentID=105281. 171.Information obtained from: The Tax Foundation, The Facts on Alabama’s Tax Climate, http://www.taxfoundation.org/ research/topic/10.html. 172.See, among others, General Summary of State Taxes, Alabama Department of Revenue; and Alabama Taxes and Incentives, Birmingham Chamber of Commerce, www.birminghamchamber.com/busdata/incentives.pdf. 173.Information obtained from: Arise Citizens’ Policy Project, “The 2009 Tax Fairness Amendment: Answers to Some Common Questions,” March 31, 2009, http://www.alarise.org/Taxes%20Reform/Tax%20Fairness%20 Amendment%20Q&A.pdf. 174.Id. 175.“Alabama Earmarks More of its Taxes than Any Other State.” Birmingham News. December 1, 2008 (citing NCSL study of FY05 spending). 176.Information obtained from: Alabama State Treasurer, State of Alabama Comprehensive Annual Financial Report FY07, Table II. LFO Presentation, Exhibit 1; The discrepancy between revenue and appropriations is due to the $3 billion in other state funds not collected through the Alabama Department of Revenue. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 76 State Report | ALABAMA notes and references 177.Information obtained from: LFO Presentation, Exhibit 1. 178.Id. 179.See LFO Presentation; State of Alabama, Executive Budget, 2009-2010, pp xxi, http://budget.alabama.gov/pages/ buddoc.aspx. 180.See, among many others, “Alabama Earmarks More of its Taxes than Any Other State.” Birmingham News. December 1, 2008. 181.Information obtained from: US Department of Justice, Bureau of Justice Statistics, Table 1, HIV in Prisons, 2006. 182.South Carolina also houses HIV-positive prisoners separately, and Mississippi segregates male (but not female) HIV-positive inmates. Telephone conversation with Jackie Walker, HIV/AIDS/Hepatitis Information Coordinator, American Civil Liberties Union National Prison Project, August 25, 2009. 183.Information obtained from: letter to ADOC Commissioner Richard Allen from state legislators, ACLU of Alabama, and AIDS Alabama, September 28, 2007, http://www.aclu.org/hiv/discrim/tutwilerprison.html. 184.Information obtained from: ACLU of Alabama, HIV Positive Prisoners Receive More Equal Treatment in Alabama After ACLU’s Efforts, November 1, 2007, http://www.aclualabama.org/News/PressReleases/Highlights/110107.html. 185.See ADOC Web site, http://www.doc.state.al.us/reentry.asp. 186.Information obtained from: electronic mail correspondence with Elana M. Parker, Reentry Coordinator and Public Health Liaison, Alabama Department of Corrections and Alabama Department of Public Health, February 20, 2009. 187.Information obtained from: American Civil Liberties Union, Alabama Department of Corrections Ends Ban of Prisoners with HIV from Work Release Programs, August 13, 2009, http://www.aclu.org/hiv/discrim/40734prs20090813.html. 188.Information obtained from: letter to ACLU of Alabama from ADOC Commissioner Richard Allen, October 24, 2007, http://www.aclu.org/prison/restrict/32493res20070928.html. 189.Harris v. Thigpen. 941 F.2d 1495 (Ala. 1991). 190.Onishea v. Hopper. 171 F.3d 1298 (Ala. 1999). 191.Johnson v. U.S. 816 F.Supp. 1519 (N.D.Ala. 1993). 192.Information obtained from: Report on Program Access for Prisoners Living with HIV/AIDS, 2003. 193.Id. 194.Information obtained from: letter to ADOC Commissioner Richard Allen from state legislators, ACLU of Alabama, and AIDS Alabama, September 28, 2007, http://www.aclu.org/hiv/discrim/tutwilerprison.html. 195.See BRIGHT Project Web site, http://brightproject.org/history.php; telephone interview with Michele Bailey, BRIGHT Program Coordinator, December 15, 2008. 196.Information obtained from: Alabama Department of Labor Web site, http://alalabor.alabama.gov/job_termination_ laws.htm. 197.AL ST §22-11A-60 et. seq. 198.Bragdon v. Abbott, 524 U.S. 624 (1998). 199.See, eg, Center for AIDS Prevention Studies, University of California, San Francisco, Anti-discrimination policies in the US increase use of HIV testing, International Conference on AIDS, July 1992. 200.Information obtained from: National ADAP Monitoring Project Annual Report, April 2009, http://www.kff.org/hivaids/ upload/7861.pdf. 201.Id. The 3 states are Idaho, Texas, and Utah. 202.Information obtained from: National Alliance of State and Territorial AIDS Directors (NASTAD), ADAP Watch, June 2004, http://www.nastad.org/Docs/Public/Publication/2006226_2004-JUNE.pdf (accessed 2/26/09). alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 77 State Report | ALABAMA notes and references 203.Information obtained from: “Alabama to Remove 200 Patients from ADAP Unless State Approves $1M in Funding, Health Department Says,” Kaiser Daily HIV/AIDS Report, 13 April 2005, http://www.kaisernetwork.org/daily_ reports/rep_index.cfm?hint=1&DR_ID=29319. 204.Information obtained from: National ADAP Monitoring Project Annual Report, April 2005, and SHARP Community Partners Meeting, Provider session, November 17, 2008, Birmingham. Note that the ADAP fiscal year runs from April 1 to March 31 of the following year, unlike the general federal fiscal year, which runs from October 1 to September 30 of the following year. 205.Information obtained from: “Alabama to Remove 200 Patients from ADAP Unless State Approves $1M in Funding, Health Department Says,” Kaiser Daily HIV/AIDS Report, 13 April 2005, http://www.kaisernetwork.org/daily_ reports/rep_index.cfm?hint=1&DR_ID=29319. 206.Information obtained from: K. Hiers. MY VIEW: Cutting AIDS funding in Alabama will hurt. The Birmingham News. May 17, 2009, http://blog.al.com/birmingham-news-commentary/2009/05/my_view_cutting_aids_funding_i.html, (accessed May 18, 2009). 207.Id. 208.Information obtained from: “Alabama Should Fully Fund State ADAP to Remove Patients from Waiting List, Editorial Says,” Kaiser Daily HIV/AIDS Report, December 21, 2004, citing Birmingham News editorial of December 20, 2004. 209.Ala. Code 1975 §22-2-1. 210.Ala. Code 1975 §§22-2-4 and 22-2-9, and Ala. Admin. Code 420-1-5-.02. The four councils are the Council on Dental Health; the Council on Animal and Environmental Health; the Council on the Prevention of Disease and Medical Care; and the Council on Health Costs, Administration and Organization. 211.Ala. Admin. Code 420-1-5-.02. 212.Ala. Code 1975 § 22-2-8. 213.Information obtained from: telephone conversation with Jason Hohl, ASTHO Member Services, May 20, 2009. 214.Information obtained from: SHARP Community Partners Meeting, April 9, 2009, Birmingham. alabama An Analysis of the Successes, Challenges, and Opportunities for Healthcare Access 78 alabama An Analysis of the Successes, Challenges, and Opportunities for Improving Healthcare Access Prepared by the Health Law and Policy Clinic of Harvard Law School and the Treatment Access Expansion Project. Funded by Bristol-Myers Squibb, with no editorial review or discretion.