Operation Sign-Up - Irish Wheelchair Association
Transcription
Operation Sign-Up - Irish Wheelchair Association
spokeout_Spring_11-cover:Layout 1 03/03/2011 14:53 Page 1 spokeout Lifestyle magazine for people with limited mobility published by the Irish Wheelchair Association €4.00 Spring 2011 Orla Murray on behalf of Paul Sherwood Photography Operation Sign-Up IWA CALLS ON MEMBERS TO REGISTER THEIR HOUSING NEEDS WITH CITY AND COUNTY COUNCILS The sky really is the limit The husky express Vertical gardening spokeout_Spring_11-p3:Layout 1 03/03/2011 14:54 Page 3 Contents INTRODUCTION 7 Message from the CEO Kathleen Mc Loughlin, CEO of IWA, invites members to IWA’s Annual Conference and AGM COVER STORY EDUCATION & CAREERS 19 University access Services and facilities available to applicants and students at universities 8 Operation Sign-Up IWA’s new housing initiative supports members interested in applying for their own home 22 A day in the life Lisa Weldon on the challenges she faces in her role as ALS Co-ordinator FEATURES ACCESS 10 Words of wisdom Clare-based author Donnacha Rynne talks about his book Being Donnacha 25 Virtual relationships Internet dating cartoons 12 Nightmare in Sleepy Hollow Judie Bruno’s story of her move to a wooded canyon PRODUCTS 16 Clean as a whistle Aids and appliances to tackle hygiene issues 27 Terminal 2 Review of access arrangements at Dublin Airport’s new terminal TRAVEL 28 The husky express Niall McDonnell and Sharon Shannon go dog-sledding in Norway 36 The sky really is the limit June Scannell explores New Zealand, on the road and in the skies 40 Holidaying at home Accessible holiday accommodation in Ireland 36 51 Sports focus 2011 What to look forward to in 2011 NEWS 55 News Disability and fundraising news REGULARS 60 Regional snapshots What’s happening around the country 63 Crossword Crossword No 11 by Gordius 63 Your views Letters to the editor 64 Small ads Sell on items or pick up a bargain SEE p31-34 for booking forms for IWA’S ANNUAL CONFERENCE AND AGM ‘A Home of My Own’ LIVING 42 Virtual gardening How to bring wall spaces to life with flowers, herbs and even vegetables 28 MOTORING 45 Simple mobility solutions Low cost easy-to-install adaptations for drivers and passengers SPORT 49 Father of the Paralympics The story behind the foundation of the Paralympics 49 spokeout 3 spokeout_Spring_11-p4:Layout 1 03/03/2011 15:03 Page 4 introduction pring is here, at last, and in this issue we have plenty of stories to inspire you to get out and about. Californian wheelchair user Judie Bruno writes about her move to her dream home in a wooded canyon. Niall McDonnell talks about learning dog-sledding in Norway with musician Sharon Shannon, and June Scannell describes meeting new relatives and discovering extreme sports on an exhilarating trip around New Zealand. We interview Clare writer Donnacha Rynne, who has joined the ranks of his creative extended family by publishing a book of reflections on living with a disability. For the green fingered among us, we look at a new trend for vertical gardening – in other words, gardening on walls or shelves – which offers exciting possibilities for people with limited mobility. Enjoy the issue and please get in touch if you have a story or opinion to share. S Joanna Marsden, Editor Spokeout on CD and tape Spokeout is now available on both tape and CD. Please contact Colette Molloy on 01 818 6485 or [email protected] Editor Joanna Marsden Cartoons Johnny Connaughton Editorial Assistance Kiara Lynch, Colette Molloy, Anita Matthews Distribution Shanahan Direct Editorial Design Manager Layla Hogan Advertising and Marketing Design Manager & design this Issue Diarmuid O’Connor Advertising Production Co-ordinator Amina Ferradj Advertising Production Ciaran McBride Printing Precision Colour Printing Ltd Cover photo Orla Murphy (Paul Sherwood Photography) recycle When you have finished with this magazine please recycle it. 4 Joint Managing Directors, Dyflin Karen Hesse, Philip McGaley Editorial enquiries to: The Editor, Spokeout, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3. Tel: (00 353) 1 818 6455 Email: [email protected] Advertising enquiries to: Dyflin Publications Ltd Cunningham House 130 Francis Street, Dublin 8 Tel: (00 353) 1 416 7930 Spokeout is published by Dyflin Publications on behalf of I.W.A. Limited. The copyright rests with IWA and no material may be reproduced without the permission of IWA. The views expressed in the publication do not necessarily represent the views of IWA. Spokeout is distributed quarterly by post to 20,200 IWA members and to Government bodies and other disability interest groups. ISSN NO: 1393-8517 MEET SOME OF S… OUR CONTRIBUTOR Kiara Lynch Editorial Assistant Kiara Lynch is from Co Longford, but lives in Dublin. Kiara spent the winter wrapping up in hats and scarves trying to avoid swine flu, and is relieved to feel spring in the air. Over the past few weeks, she’s been helping her older sister with wedding dress shopping, while getting some ideas for her own ‘big day’ next year. June Scannell June Scannell lives in Blarney, County Cork. Despite having muscular dystrophy, she is an ardent global traveller, counting South Africa, Hawaii and New Zealand amongst her favourite destinations. In the 1990s, upon discovering she had been adopted as a child, June set out to find her paternal siblings, a quest which brought her on a magnificent trip to New Zealand for a family gathering in 2009. Jim Hayes Jim Hayes lives in South Dublin and is one of the parents involved in the Dublin Swifts Junior Sport Club, which runs every Sunday in Clontarf. Jim has a keen interest both in sports and in history, and he has recently been researching the history of IWA Sport and the paralympic movement, including finding out more about the man who founded the Paralympic Games, Sir Ludwig Guttmann. Judie Bruno Judie Bruno lives in Silverado, California, but is a good friend of Carlow member Hamilton Delargy. She is currently renovating her new home in a wooded canyon, where she lives with her much-loved assistance dog Fred. Judie says Fred helps her live by herself and, most importantly, gives her a reason to get up and about even on a bad day. She gives him walks, food, brushing, and training – and he gives her lots of love in return. Niall McDonnell Motor enthusiast Niall McDonnell works in IWA’s Moblity Centre in Clane, and enjoys vintage cars in his free time. In December, he took part in an unusual RTE documentary – soon to be broadcast – for which he travelled to Norway with traditional musician Sharon Shannon to learn how to dog sled with huskies. SUBSCRIBE NOW Please send your name, the name of your organisation (if applicable), address and telephone number, with a cheque or postal order for €15.00 (payable to IWA) to: Spokeout subscriptions, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3. spokeout_Spring_11-p7:Layout 1 04/03/2011 16:23 Page 7 introduction MESSAGE FROM THE CEO Kathleen Mc Loughlin looks forward to IWA’s Annual Conference and AGM in May, which will provide a forum to debate the housing issues affecting people with disabilities Welcome to the first Spokeout of 2011. The cover of this issue features the launch of Operation Sign-Up, a campaign designed to support and encourage our members to register their housing needs with their local city or county council. We will be continuing the housing focus at our Annual Conference and AGM on May 21st and 22nd, where the theme for presentations and discussions will be ‘A Home of My Own’. I look forward to the Annual Conference every year because it symbolises the democratic basis on which the organisation is run. The event gives members an opportunity to highlight issues that are impacting on their lives, and to shape the strategy and policies of the Association. It is vitally important that IWA stays in touch with the wishes and needs of the members it represents, and I encourage you to come along and have your say. AGM 2011 This year, the Annual Conference takes place in the lovely setting of The Heritage Golf & Spa Resort, Killenard, Co Laois. As well as attending to the business end of things, there will of course be a social dimension to the event with the Gala Dinner on Saturday evening and a Summer Fête on Sunday. Each year, I enjoy meeting new people at the Annual Conference, as well as catching up with old friends, and I warmly invite you to join us for the weekend. Note: If you are unable to attend the Annual Conference, please consider registering for a postal vote by following the steps below. A HOME OF MY OWN Annual General Meeting of I.W.A. Limited 2011 Saturday 21st May 2011 | The Heritage Golf & Spa Resort, Killenard, Co. Laois. REGISTER FOR YOUR POSTAL VOTE Follow the three steps below... 1 Request a Registration Form in writing by Wednesday 20th April 2011 from the Company Secretary, I.W.A. Limited, Blackheath Drive, Clontarf, Dublin 3 or by calling Tel: 01 818 6403 2 Complete the form and return it to the Company Secretary by 5pm Wednesday 4th May, 2011 3 Upon approval by the Company Secretary, you will receive a voting paper. This voting paper, to be effective, must be returned to the Company Secretary not later than 5pm on Wednesday 18th May, 2011 Memorandum and Articles of Association of I.W.A. Limited Article 35: A member with limited mobility is entitled to a postal vote for general meetings of the Company. Article 36: Members may register for the postal vote at any time of the year. When the registration is approved by the Company Secretary a member may vote by post (but not in person) at all general and extraordinary general meetings of the company for a period of twelve months. The minimum time for registration is sixteen (16) days prior to the meeting at which the member intends to use the postal vote. The ballot paper must be received by the Company Secretary two (2) full days before the relevant meeting. Article 37: When such a member receives a ballot paper they will also receive a declaration of identity form. This form must be signed by the member and witnessed by a person who is known to them. The witness should not be aware of how the member has voted. spokeout 7 spokeout_Spring_11-p8-9:Layout 1 03/03/2011 15:28 Page 8 Orla Murray on behalf of Paul Sherwood Photography IWA member Robert Vaughan with Teresa Conlon, Allocations Officer with DCC, at the launch of Operation Sign-Up SIGN UP NOW! Visit www.iwa.ie/house Operation SIGN-UP Do you want your own accessible, affordable accommodation? Anita Matthews hears how IWA’s new housing initiative can help those interested in living in their own home peration Sign-Up is an IWA housing initiative which encourages and supports people with disabilities who wish to live in their own homes, but cannot do so from their own resources, to apply for social housing through their local city and county councils. Social housing is an umbrella term used to describe subsidised rental accommodation funded by the Government and provided by a city or county council and by approved housing bodies, often known as voluntary housing associations or housing co-operatives. Social housing is provided to people who are assessed as being unable to provide for the cost of their housing need from their own resources. City and county councils are the main providers of social rented housing. Operation Sign-Up offers people with disabilities a stepby-step guide to applying for social housing in the area in which they wish to live. The first and most important step is to apply to place your name on the local council housing list of the area in which you would like to live. Being registered on the council housing list makes it possible for you to be offered a home by the Council, by a voluntary housing association or by a housing co-operative, and also to make an application for rental supplement for private rented accommodation through the HSE. O 8 IWA has broken down the ten steps involved in the application process and has also listed other information required during the application process, such as contact details for local councils, information links to local health centres and tax offices, and details of local IWA centres. All information and details about Operation Sign-Up and social housing can be found on www.iwa.ie/house. This website is a unique and innovative development, providing a large range of information, resources and contact details to IWA members in a simple easy-to-use format. The website also provides information and details regarding many other housing issues including: the direct provision of housing; housing information; advice on housing tenures; and related services and supports. This campaign has been developed by IWA to support its members to live as independently as possible. People with disabilities often have very specific housing and accommodation requirements. There are a variety of options available to meet each individual’s circumstances and the new website provides as much information as possible about the different housing options available. People with disabilities must register their housing need with a local city or county council so that the council can plan to meet their housing requirements. Local councils do not have a clear picture of the number of people with spokeout_Spring_11-p8-9:Layout 1 03/03/2011 15:28 Page 9 cover story disabilities who need housing or their preferred living situation, unless individuals register their name on the social housing list. Teresa Conlon, Allocations Officer in Dublin City Council, says, “In my experience an awful lot of people with disabilities have not registered their housing needs with their local authority. This is a pity because local authorities need to be made aware of these needs so we can factor them in when we make planning applications or decisions to purchase.” Local councils have a responsibility to respond to the right of people with disabilities to live as independently as possible in their preferred living situation but unless they know what this need is, they can’t meet it. “I would encourage IWA members to register their housing needs as soon as possible,” adds Teresa. IWA members who have undertaken the application process also share their success stories on the Operation Sign-Up website, www.iwa.ie/house MY STORY Robert Vaughan, who lives in a Dublin City Council bungalow in Donnycarney, tells Joanna Marsden how he tackled the application process Robert Vaughan grew up in the Artane area of Dublin 5, and when it came to looking for a place of his own he wanted to stay in his comfort zone. “Apart from a short spell working in Holland in my 20s, I’d always lived in the family home. The idea of living independently in the same area was less daunting because it meant I could still do all the same things, like meeting friends and going to local pubs or shops.” Robert registered with Dublin City Council (DCC) in 2005. “I have a form of muscular dystrophy which progresses slowly, and while the family home had been adapted, it was just my mam and me living there. Mam was getting older and, with only 12-14 hours of PA support a week, it was becoming hard work for her.” When Robert decided to apply for local authority housing, he met with a family support worker in Muscular Dystrophy Ireland (MDI) and with IWA’s Housing Officer, Dolores Murphy. “I got a lot of help from both MDI and IWA. Dolores knew what was coming up in terms of accessible housing and she informed me that DCC were building some bungalows in Maypark, Donnycarney, less than a mile from my family home. “Dolores made it clear that the first step towards getting one of these units was registering on DCC’s housing list. There was a bit of form-filling involved, and I had to get an OT’s report. I knew it was a process that would take time, but in the end, it all happened more quickly than I expected. “The way it works,” adds Robert, “is that someone from the council comes out and assesses the suitability of your current accommodation. They award you points based on your disability and requirements. In my case, I got a call from a DCC architect just 18 months after my initial application. He said he’d been allocated my file in relation to the Donnycarney development and wanted to have an initial meeting to discuss my requirements in terms of door widths, bathrooms, etc.” Being allocated a property was only one aspect of Robert’s transition to independent living. “The main issue I had was getting a care package in place to support me – and I think this is something that is getting even harder in the current climate. Eventually, through the support of MDI and IWA, I was allocated more or less full-time support, including overnights.” Robert now has four PAs – Kash, Novica, Samantha and Ciaran, “When I first moved into the bungalow, I found the adjustment difficult. I had to change my phyiso, OT and IWA co-ordinator because I’d moved from community care area 8 to community care area 7. The bungalow was also a lot smaller than the house I’d been used to, and it took a while to get used to having PAs there all the time. But I think everyone goes through a transition period and you settle after a while. “The financial aspect of independent living is a big thing. Everything that comes through the letterbox has your name on it. It’s no longer your mam’s responsibility, or even a shared responsibility. You have to keep on top of everything.” Over the past few years, Robert has also continued to develop his career. “I started out many years ago as an auto-electrician and I worked in Dublin Bus for 16 years before taking redundancy in 1997. After that I took a course in electronics and got a job in an electronics company for seven years. More recently I did a year’s business course in Killester College, and went on to get my current job, working in admin in Kartel Clothing. I‘ve been lucky because I’ve always been working or studying.” Robert says he is always happy to talk about his own experience of applying for a house because he hopes it will encourage others to do likewise. “I think there are lot of younger people out there in difficult situations who would like to have more independence. I’d encourage them to start the process by registering with their local authority. Yes, there will be red tape and bureaucracy, but the end result is well worth the effort.” spokeout 9 spokeout_Spring_11-p10-11:Layout 1 03/03/2011 15:30 Page 10 Words OF WISDOM Donnacha Rynne was born with cerebral palsy and developed multiple sclerosis in his early 20s. Living with this complex disability has given him a unique perspective on life, which he shares in his book Being Donnacha. Joanna Marsden met Donnacha and his mother, Anne, at his home in Miltown Malbay, Co Clare “I always say Donnacha was born old,” says Donnacha’s mother, Anne Rynne. “He is very inspirational and full of wisdom. His attitude is, ‘The sun is shining and the sky is blue, we’re going to have a good day’. I’ve never heard him utter a word of complaint. He is patient and positive despite all the physical negativity in his life.” Donnacha was born in Co Kildare in 1970 and has a twin brother, Niall, as well as two other brothers, Davóg and Turlough, and a sister, Áine. The family moved to Co Clare when he was young, and for many years they ran a hostel in Spanish Point. Donnacha writes, “The happiest time of my life was when I was a teenager looking after the hostel. I had an interest in earning money. It gave me legitimacy as a man.” Although Donnacha was born with cerebral palsy, he has only become a wheelchair user in recent years, as a result of multiple sclerosis (MS), which he developed in his 20s. “Now being disabled is a full-time job. Life is a job for me.” Donnacha comes from a creative family and it was his uncle, Barry Moore (aka Luka Bloom), who first mooted the idea of a book. “Barry came to see me one day and we had a long chat,” remembers Donnacha. “He went away saying, ‘That fella has a book in him but the question is how to extract it.’” Anne adds, “After a lot of chatting, we decided to ask our good friend Tom Prendergast to work with Donnacha on the book. It was a very onerous task, because Donnacha’s memory is limited, and it took two and a half years of regular visits and recordings to gather the material. It became a real team effort. Donnacha’s brother, Turlough, even designed the book.” ` Being Donnacha is divided into three chapters. The first chapter is composed of a series of Donnacha’s reflections on aspects of his life, such as being a twin or wishing he was in a relationship. The second chapter is a collection of 16 poems written by Donnacha during an intense period of creativity in his 20s. The third chapter, titled ‘Knowing Donnacha’, is a collection of tributes to him, in prose and poetry, written by those who know him well, including his uncles Luka Bloom and Christy Moore, and good friend Gerry Adams. The book is presented in a way that enables the reader 10 Donnacha relaxing at The Electric Picnic, 2008 to dip in easily, as one would with a book of quotations. It has clearly captured people’s imaginations because the initial print run of 500 copies has sold out. “Not a day goes by,” says Donnacha, “that we don’t get a telephone call, an email, a card, or someone stopping me on the street, to say how much they’ve enjoyed the book. I even got a letter from Bishop Willie Walsh complimenting the book.” Donnacha’s family believes his health has improved enormously as a result of the book and the feedback it has received. “Absolutely,” agrees Donnacha. “To say it’s given me a lift is right. It’s the connection and the pride. I feel like I have contributed to the world.” Although Donnacha has a close circle of family and friends, he finds it hard to get to know other people. “I sometimes feel that people behave superficially towards me, and it bothers me a great deal. [...] They may feel uncomfortable around me and that could be because of fear. I wish people weren’t so afraid, that they would spokeout_Spring_11-p10-11:Layout 1 03/03/2011 15:30 Page 11 feature The Rynne Family, 2008. Back row: Davóg, Turlough and Áine. Middle row: Donnacha, Niall, Anne, Davoc and Sophie. Front row: Léane and Amelia. engage with me more. I hate when people talk at me, which they do. I prefer if they talk to me.” Donnacha says when he meets new people they often seem “like rabbits caught in the headlights”. He hopes his book will help people understand him better and perhaps lose their awkwardness around disability. “If people really want to know about me, they can buy my book. In fairness, I have nothing to hide. I like to think I’m philosophical and pretty laid back. Disability can cause a sense of hopelessness but I deal with it day by day. I need to and like to create my own positivity. Hope is very important too. [...] There is an air of gentleness about hope. I exaggerate the hope I have in order to make life a little easier.” Developing MS has made life much more difficult for Donnacha. “But I made a decision in the early days not to get angry,” he says. Sometimes this can be hard. Anne recalls, “When Donnacha was 16 or 17, I had a sense that a huge anger was welling up in him. He was a free spirit and he got teased a lot in school. My brother Christy suggested yoga, and it really showed Donnacha that there was another way. Although Donnacha has found it hard to practise yoga in recent years, we often go on retreats to the Spiritual Care Centre at Dzogchen Beara [a Tibetan Buddhist Retreat Centre in West Cork].” Donnacha lives independently in an adapted bungalow in Miltown Malbay. “Things could be so much worse,” says Donnacha. “I enjoy going to Ping’s for a coffee, and sometimes I meet people there. Lots of people know me in Miltown, but I wish more would come to visit. [...] It can be very lonely. I need to be distracted from myself. I recognise I’m not the only disabled person with these problems. [...] When my carers are gone a whole lot of nothing happens. To get from one moment to the next means just grinning and bearing the situation. There is no joy in it. The cover of It feels empty. It feels as Being Donnac ha though there is always something missing from my life.” This emptiness is something that Donnacha attributes largely to the fact that he does not have a relationship. “I would like to have a partner, even children, though I know it would be difficult. I am human after all. [...] I’m tired of being in a single bed all my life. I’d love a double bed and someone to share it.” He also writes, “I have no sexual identity in a wheelchair, or there is no sexual sense of me. I don’t know where to go or what to do with these feelings.” Donnacha says he feels relief when he shares his thoughts and feelings with others, which is perhaps why the book has had such a positive impact on his health. “I love these recordings as they give me an opportunity to express myself. They make me feel complete. I don’t like to complain or to ask people to do things for me, but I realise that sometimes I should. It’s not good to keep it bottled up all the time.” Being Donnacha can be ordered online at www.beingdonnacha.tumblr.com or by sending a cheque or postal order for €20 (including p&p) to Anne Rynne, Miltown Malbay, Co Clare. spokeout 11 spokeout_Spring_11-p12-14:Layout 1 03/03/2011 15:31 Page 12 Nightmare in SLEEPY HOLLOW When Judie Bruno moved from Palm Desert, California, to her new home in a wooded canyon just a few days before Christmas, she knew it would be the start of an adventure, but she wasn’t prepared for what happened the night she arrived One of Judie’s neighbours’ homes, which was covered by a mud-slide had always wanted to live in a cabin in the woods, but because I use a power wheelchair, I can’t manage snow. My new home in Silverado, California, seemed perfect because it is in a wooded setting, known as Sleepy Hollow, but doesn’t have the extreme weather conditions – or so I thought! This is the story of my move there in December 2010, during the worst storm since 1929. On the Tuesday before Christmas, my movers arrived at my condo in Palm Desert at around 8am with a truck that was way too small to move my things. While one of them went back for a larger truck, the other two loaded up a van with fragile items, paintings and boxes, but it still got us off to a late start. Around noon, when there was wasn’t anything else my mom and I could do, we left the movers to finish packing and close the condo, and with my assistance dog, Fred, we headed up to Silverado Canyon. It’s usually a little over a two hour drive, but with traffic and rain, it turned out to be around three hours. I found when we arrived that my new cell phone didn’t work at the house, though it would work around the centre of town. I had told the movers to call me when they were about to enter the Canyon and I would meet them. I waited in town for them and they finally arrived around 6pm. We left the truck in town and took the van down to the house I 12 so they could unload that first. It was about that time that the rain really started to come down. About an hour later, I noticed the bathroom toilet had flooded and there was an inch of clear water on the floor. There was nothing I could do about it that night. There was another very small bathroom down the hall to the shed with two steps down. I couldn’t use my power chair, so we put my manual chair in the hallway. The steps were not easy for me, but I felt blessed we had another bathroom. My realtor [estate agent], Mary, stopped by to bring us some snacks and two short wave radios. She briefly told me that when the radios were on, to tune to channel 16, as that was the emergency signal. I didn’t pay much attention to them at the time and put them on a ledge. The movers exchanged the van for the truck. It was raining so hard that they got soaked taking things inside. It was after midnight by the time they finished and I offered to allow them to stay the night, but they decided to turn the truck in at a nearby place and drive the van back to the Desert. About an hour later, Mom and I had made our beds and climbed into them totally exhausted. We had been up since 6am. I had been in my chair or driving almost all day long, and my foot was so swollen I couldn’t even get my large slipper on. The house was cold and damp, and I couldn’t seem to get the temperature up high enough, but we had plenty of quilts and blankets. My bedroom sits a bit over the creek in the back of my house, with double French doors and a window on each side. I remember looking at the creek then and being amazed at how high the water had risen, but I fell asleep soon after turning out the light. I was sleeping on my airbed on a platform in my bedroom. Mom, who is 85, was in bed in the little bedroom off the living room. Something woke me around 4am and I looked outside to see all kinds of lights in the mist of the rain. I couldn’t figure out what they were and even thought it might be a fire, maybe started by lightning. I remembered Mary telling me that if I heard loud rumbling it wasn’t thunder but boulders rolling in the creek, so when I heard it I wasn’t too worried. Just then I saw someone on the bridge shining a light spokeout_Spring_11-p12-14:Layout 1 03/03/2011 15:31 Page 13 cover LEFT: The creek on a normal day ABOVE: Judie with her assistance dog Fred, who was by her side through the whole adventure onto the water and it scared me. It looked as if the water I had no idea where my candles might be in all the was about a foot from going over the embankment across boxes, so I gently woke my mom, trying not to scare her, the creek from the back of my house. I didn’t know at the and asked if she knew where they might be. Thankfully, time that my house sits much higher, and I was afraid that she did. I then heard on the radio that someone was soon the water would be coming in through the French asking if anyone could go and check on Judie Bruno, the doors. I also noticed that the power was off, as I had left a new lady in the wheelchair who had just moved in on light on in the living room for my mom. It was very dark and Sleepy Hollow, past the bridge, with her elderly mother, as I have to admit I was very scared sitting in my bed with no we had no phone and probably didn’t know what to do. way to communicate, no phone, no TV or internet, and not I’m sure Mary had called them to check on me. knowing what was going on. I decided to get on the radio myself. I told them who I It was then that I remembered the was, that we were okay and the house radios Mary had brought. I used the LED was dry, but that I was concerned about The joke seemed to how high the creek behind it had risen. I light from my power chair and a lighter to find them, put them together, load the be that I had told didn’t know at the time that the sides of batteries and read the directions. I finally the creek and bridge are made of everyone I was got one on to channel 16 and started to concrete and stone, and that the moving in Tuesday foundation of my house is built right into listen and I sure didn’t like what I heard. A woman had had her whole house covered ‘come hell or high them, and very strong. The woman by a mud-slide. They had gotten her out running the emergency radio said ‘10-4’ water’ and it sure and that she would report I was okay. but mud was all over the place, and more homes were being covered in it. Another A few minutes later there was a knock looked like we had house at the mouth of the next street to on my door and a woman named Diane had both! mine was also full of mud. The house on was there to check on me. She lived two the corner was full of mud in the back, doors down. I told her I had no and the street was blocked by mud and no one could get emergency lights and was a bit afraid. She told me not to in or out. Two houses up the mountain had completely worry, that my house, built the way it was and so high, was collapsed, a car had gone over into the creek, and they probably one of the safest in the area. She said she would had evacuated the area called ‘Cabin Town’ right behind come back with some lanterns. the centre of town where two good friends lived. Soon afterwards, another neighbour, Tom, a volunteer The creek outside my bedroom window was getting fireman whom I had met just for a second the previous higher by the minute. It had reached the level of going over week, came by. He told me that the creek would flow over the bank across from me by the bridge and I feared it the other side if it did get over the bridge. That went a long would soon be the same on my side of the creek. way to help me relax. spokeout 13 spokeout_Spring_11-p12-14:Layout 1 03/03/2011 15:31 Page 14 feature Fred, Judie’s assistance dog, looking happy in his new surroundings The side of Judie’s new home, which is built into the side of the creek. Judie watched the rising water from the French windows in her bedroom Soon Diane was back with three storm lanterns, and with those lit it all felt much better. We were cold of course, with no power, but just having light goes a long way to making one feel warmer. I told my mom all would be okay and she went back to sleep. It was about 5:30am but I sat up in bed watching and listening the rest of the morning. A few hours later Diane returned with a thermos of hot coffee, and then the lights and power came back on, including heat of course, and all seemed so much better. On the radio I listened as the whole community came together over that day to help everyone, clear mud, cut down trees and get diggers and tractors in and out. It was amazing to see how everyone pitched in. I wished there was something I could do but mud was blocking the street so I couldn’t get my wheelchair through, or access my van. I have a very nice courtyard with a good wooden fence, and I left my gate open the rest of the day so I could see what was going on outside. Mary and so many of my new neighbours stopped by to see if there was anything they could do. No one was injured badly, no one was killed, but 23 homes had been ‘red tagged’ as dangerous to enter. There was damage everywhere. Bridges out, homes full of mud, some collapsed, cars also. One of my neighbours said that this was our Katrina. I know it wasn’t that bad, and we only have a little over 270 homes in the whole Canyon, but still, I had never been in a situation of this type before. There was also damage in the other canyons in the area and the road going in and out was blocked, so no one could leave. The Red Cross came by to see if there was anything we needed, like prescription drugs, but again we were just fine. My mom felt better about my move to this new house when she saw how everyone checked in on us. She felt I was safe living here. The joke seemed to be that I had told everyone I was moving in Tuesday ‘come hell or high water’ and it sure 14 looked like we had had both! I asked them what they had planned for next week’s entertainment. They all thought that was funny. On Thursday, Diane drove my van to my gate and I was able to drive into town to check my phone messages, get my mail at the post office and stock up at the store. Christmas Eve I baked a Cornish game hen in the toaster oven. It came out just fine, and with half a yam each and a bag of veggies it wasn‘t a bad dinner at all. Merry Christmas, we laughed. My friends brought us dinner on Christmas Day. On Sunday, the previous owners sent a plumber out to unblock the toilet. People stopped again just to chat. I met more new neighbours. Then the volunteers started again. There were trucks, diggers, all kinds of equipment going up and down the street outside. I couldn‘t believe how hard everyone was working. Fred loved it all: the people, noise, smells, except I wasn’t able to take him out for a walk. He kept wondering why I didn’t follow him out the gate and down the road, but I could only allow him to go as far as the flexi leash would go out. I kept telling him it was okay to do his potty stuff in the courtyard, but I’m sure he would rather have been out and about checking out the new surroundings. I remember saying that this 63-year-old, one legged woman in a wheelchair with a dog on her lap was up for one more big adventure in buying this house and remodelling it, but I had no idea what I was getting into the very first night. When it rains now, I can hear a few boulders moving down the creek, but they have cleared away everything that had caused it to rise so high. I wanted to live out in the woods and still do. This is my dream house, my dream for the rest of my life, and no matter how hard at times, a dream is worth working for. Judie Bruno became a wheelchair user as a result of sky diving accident when she was in the US Army in the 1970s. She is a friend of IWA member Hamilton Delargy from Carlow, who kindly sent on her story. spokeout_Spring_11-p16-17:Layout 1 03/03/2011 15:32 Page 16 CLEAN AS A WHISTLE We all like feeling clean and comfortable, and there are many aids and appliances on the market to help us tackle the more complex hygiene issues says Kiara Lynch FEMALE URINAL This female urinal is anatomically designed for use while sitting, standing or lying down. It has a flat-bottomed base so it can stand on flat surfaces without tipping over. The urinal has an integral handle and a graduated chamber. The clear plastic material means the user can see when the device is full. It can be chemically cleaned and machine washed up to 100oC. Available at approx €17 from a range of suppliers, including: Murray’s Medical Equipment, Dublin (01 855 5733); Beechfield Healthcare, Laois (057 868 2304); JS Dobbs & Co Ltd, Dublin (01 839 1071); MED Surgical Ltd, Dublin (01 839 1511). TOE WASHER This toe washer provides a way for individuals with mobility difficulties to wash their feet and between their toes without having to bend over. The rectangular towelling pad is mounted on a flexible wire shaft, which can be angled as required. It has a built-up plastic handle that is easy to grip. A spare pad is included. Available at approx €16 from a range of suppliers, including: Murray’s Medical Equipment, Dublin (01 855 5733); Beechfield Healthcare, Laois (057 868 2304). 16 BED PAN WITH HANDLE This toileting aid is designed to be used in bed and may be helpful for frail individuals or those with limited mobility. The bedpan is made of plastic and can be sterilised by steam, boiling or chemicals. It has a horseshoe-shaped sitting surface with an opening at the front so liquid can be disposed of easily. The bedpan has a horizontal handle at the rear for transportation. Available at approx €42 from a range of suppliers, including: Murray’s Medical Equipment, Dublin (01 855 5733); Beechfield Healthcare, Laois (057 8682304); H & H Products, Wexford (053 942 0914); Tools for Living Ltd, Dublin (01 855 5551), Galway (091 773 782), Cork (021 487 5055). spokeout_Spring_11-p16-17:Layout 1 03/03/2011 15:32 Page 17 products BEDWELL This toileting aid is designed to be used in bed and may be helpful for frail individuals or those with limited mobility. The bedpan is made of plastic and can be sterilised by steam, boiling or chemicals. It has a horseshoeshaped sitting surface with an opening at the front so liquid can be disposed of easily. The bedpan has a horizontal handle at the rear for transportation. Available at approx €42 from a range of suppliers, including: Murray’s Medical Equipment, Dublin (01 855 5733); Beechfield Healthcare, Laois (057 8682304); H & H Products, Wexford (053 942 0914); Tools for Living Ltd, Dublin (01 855 5551), Galway (091 773 782), Cork (021 487 5055). SUCTION BRUSH FOR NAILS OR DENTURES This scrub brush has two rubber suction cups that secure it to any flat, non-porous surface. The mounted brush allows the user to scrub dentures or fingernails with just one hand. Available at €9.95 from Murray’s Medical Equipment, Dublin (01 855 5733). URIWELL Uriwell is an easy to use and sanitary urinal. It bends easily in any direction so that it can be used in any position – standing, lying or sitting – with no spilling, meaning that users can stay in their car, chair or bed when nature calls. Uriwell is unisex with an hermetically sealed lid which minimises odours and spilling. Uriwell can be collapsed to the size of a soft drink can, fitting neatly into a glove compartment, handbag or rucksack. When expanded it has a capacity of 750 ml. There is also a children’s version of the Uriwell, the Happypee. It’s more colourful and looks more like a toy, but has all the same characteristics of the Uriwell. The Uriwell, and the Happypee are available at €14.99 from Peter Nolan, Rubicon Healthcare, Louth, Tel: 041 983 7258, Email: [email protected], Web: www.rubiconhealthcare.com. WHIZ FREEDOM The Whiz Freedom is a guide funnel for use with urinals to allow women to urinate in sitting, standing and lying positions. The guide allows the user to urinate without splashes and without the need to undress. The urine guide can be folded away when not in use so that it can be transported in a bag or pocket. Available at €43.13 from Murray’s Medical Equipment, Dublin (01 855 5733). spokeout 17 spokeout_Spring_11-p19-20:Layout 1 03/03/2011 15:33 Page 19 education & careers University ACCESS In part one of a two-part feature, Robbie Cousins highlights useful services and facilities available to applicants and students at a number of universities NATIONAL UNIVERSITY OF IRELAND, GALWAY DUBLIN CITY UNIVERSITY Contact details: NUI Disability Support Service (DSS). Tel: 091 492 813. Email: [email protected] Web: www.nuigalway.ie/acces sibility.html Opening hours: Mon - Fri, 10am – 4.30pm. Contact details: DCU Disability & Learning Support Service (DLSS). Tel: 01 700 5927. Email: [email protected] Web: www.dcu.ie/students/disability Opening hours: Mon - Fri, 9.15am – 5.15pm. APPLICATIONS APPLICATIONS Generally through CAO. There is a five percent target for places to be filled through DARE. Students with a disability can also apply under Mature Student and FETAC admission schemes. Applicants with disabilities requiring specific accommodations to attend interviews should contact DLSS in good time. Applications through CAO. Twenty percent of places reserved through Disability Access Route to Education (DARE). If an applicant needs assistance to attend an interview, they should contact the DSS, detailing requirements, and DSS will work to facilitate the applicant. ACCESS SERVICES A full range of accessible services are provided by the DSS, with service staff, note takers and trained PAs available as required by individual students. Students are assessed when they enroll and facilitated in accordance with their individual needs. If a lecture is missed due to medical reasons, extra tuition is available. The Assistive Technology Service is located on the ground floor of the university library and provides a range of services, equipment and software to enable students to participate fully in their courses. FACILITIES All new buildings on campus are fully accessible. There is on-campus accessible parking. Public transport is close by the campus and PAs are available to collect students from public transport or taxi, if required. There is some on-campus accessible accommodation on the ground floor of the Corrib Student Village. ACCESS SERVICES Supervised third level qualified and trained PAs with note taking and IT skills are hired for students on fulltime undergraduate/postgraduate courses subject to HEA funding allocations. Based on personal assessment, DLSS provides a range of access services. This assessment will include assistive technology needs, and required hardware and software. If a lecture is missed due to medical reasons, additional tuition can be provided. FACILITIES There are over 25 buildings on campus, with varying degrees of accessibility. Check-out the DisabledGo Guide at www.disabledgo.com/en/org/dublin-cityuniversity. Accessible parking is conveniently located in a number of areas around the campus. There is an accessible bus stop on Collins Avenue and at the Ballymun road entrance. PAs can meet students at the stop if necessary. There are a number of accessible apartments with hoists and ensuites. DCU Sports has won many O2 Ability Awards and staff are trained in access issues. spokeout 19 spokeout_Spring_11-p19-20:Layout 1 03/03/2011 15:34 Page 20 education & careers UNIVERSITY COLLEGE DUBLIN UNIVERSITY COLLEGE CORK Contact details: UCD Disability Support Services. Tel: 01 716 7565. Email: [email protected]. Webpage: www.ucd.ie/access Opening hours: Mon – Fri, 9am – 5pm Contact details: UCC Disability Support Service (DSS). Tel: 021 490 2985. Email: [email protected] Web: www.ucc.ie/dss Facebook: UCC - Disability Support Service Opening hours: Mon - Fri, 9am to 5pm. Late opening Tues 7pm. APPLICATIONS Applications through CAO. UCD participates in DARE and HEAR (Higher Education Access Route). There is a quota of 15 percent, shared between DARE/HEAR and mature student entry. Other entry routes include Grounds of Mature Years, FETAC and an Access Course run by the Adult Education Centre. Applicants attending campus should contact DSS and they will arrange supports. APPLICATIONS ACCESS SERVICES ACCESS SERVICES The UCD Access Centre has a team of 11, of which six work directly in DSS. There is normally one qualified PA per student. Each student’s specific needs can be facilitated. Common services include: transport, PAs, note takers, exams accommodations, use of a laptop, digital dictaphone, mentoring and learning support. Other services include: classroom supports, access librarian, assistive technology, dedicated disability adviser, learning and peer support. There is peer assisted learning for first year students. UCC can accommodate all forms of disability. It has a full complement of FETAC qualified PAs as well as DSS office staff. The UCC DSS team assesses and works with students on an ongoing basis to ensure they have the right equipment (assistive technology), right assistance (PAs, note takers) and right access (transport, parking, and building facilities). Extra tuition is available if required due to illness or the nature of a particular disability. FACILITIES All UCD lecture halls, libraries and dining halls are accessible. A designated access librarian is located in the main library building. There are accessible rooms in the student residences. Lifts have been retrofitted to ensure accessibility. Each campus building has accessible parking bays. There are three main bus stops at UCD, two on campus, one at the N11 entrance. Students can be met at the bus stop and also avail of funding for taxi services where they are unable to access public transport. UCD works with the Sports Inclusion Disability Officer in Dun Laoghaire Rathdown Local Sports Partnership and with IWA Sport. There are no separate clubs for people with disabilities as students are encouraged to join existing clubs. Applications through CAO. UCC takes part in DARE and the Mature Student Access Programme (MSAP). There is a minimum first year student intake target of five percent having a disability. Any person with a disability attending campus should contact DSS and they will facilitate them, including organising transport to campus within a 15-mile radius. FACILITIES There are some access challenges in a few older listed buildings, but all modern buildings are fully accessible. Libraries, gyms, dining and other amenities have lifts and ramps. UCC’s Mardyke Sports Centre has an accessible pool and accessible gym with circuit room, and staff members are trained in access issues. The campus has extensive accessible parking. A campus bus service facilitates the movement of students with disability around campus, and from 8.30am to 10.30am and 4pm to 6pm, a bus can transport students living within a three-mile radius of the college. Accessible taxis can be organised for students living further from the campus. There are a number of accessible lodgings on campus, including high dependency units, with accommodation for PAs. Whichever third level college you plan to attend, make sure you contact its DSS office directly. In the next issue, we will be highlighting facilities at Trinity College Dublin, NUI Maynooth, Dublin Institute of Technology and University of Limerick 20 spokeout_Spring_11-p22-23:Layout 1 03/03/2011 15:35 Page 22 A day in the life... In the first of a series of interviews with frontline IWA staff, Joanna Marsden talks to Lisa Weldon about the challenges she faces each day in her role as Assisted Living Services (ALS) Co-ordinator for Laois/Offaly Lisa at her offices in Tullamore Resource and Outreach Centre isa Weldon is IWA’s ALS Co-ordinator in Laois/Offaly, a role which involves working with 59 service users and 46 Personal Assistants (PAs) to manage the delivery of 2,500 hours of frontline PA service hours each month. “A lot of my day is spent communicating,” says Lisa. “I work between two teams, IWA and the broader community health area. A typical day might include carrying out assessments with potential new service users, carrying out PA inductions or service user reviews and responding to service user needs by finding ways to improve and enhance their services, including liaising with other services, within the organisation and networking with local community services. Lisa’s current position is actually her second as a Service Co-ordinator for IWA, “I worked as an ALS Service Coordinator in Clontarf from 2000-2002, when the service was still in its infancy. I sent my CV into IWA on spec because I was interested in working in a new area. I had a Diploma in Intellectual Disability Nursing and had been working as a staff nurse in hospitals for five years, but I wasn’t sure whether I wanted to stay in that area. On my days off, I’d done a bit of agency work which had given me L 22 the opportunity to try out working in community care and with older people.” The role proved to be a big change for Lisa. “I’d come from a very structured environment, where I handed over a report at the end of my shift so that someone else could take over, and suddenly I was very much working on my own initiative. If I didn’t get the work done, no one else was going to do it. I got a very good induction but it was a case of, ‘Here’s your case load. You have all the information you need, so off you go!’ I found it daunting but it made me sit up and realise what I could achieve. “ALS was just starting out at the time,” says Lisa. “There were only three of us working the whole of Dublin, Kildare and Wicklow – I’d say the number of staff has increased significantly since! Back then, we had a list of people waiting on assessments but there was ample funding. Each time you did an assessment, you learned something new. It also made you aware of what wasn’t out there for people with disabilities. The service was developing all the time and we worked closely with groups like Rehab Care and the Centre for Independent Living on pilot projects.” After two years in that role, Lisa, who is originally from Monasterevin in Co Kildare, decided she wanted to move nearer home. “I left IWA and took a job with Rehab Care as a Day Centre Manager in Portlaoise, and after that I went back to nursing for a couple of years with the intention of up-skilling.” Lisa kept in contact with her old friends in IWA and in 2006 she heard that the IWA ALS service would be expanding into the Midlands. “I heard IWA was looking for an ALS Co-ordinator in Tullamore. By then, I was living in Tullamore with my husband Alan, and I’d already built up community links through my work in Laois, so it seemed like a perfect opportunity.” Lisa has now been ALS Co-ordinator in Tullamore for five years, during which period she has taken maternity leave twice for daughters Isabelle and Ruby. “The ALS service is very well developed in the Midlands at this stage. I share an office with my IWA colleagues and I also work on a daily basis with other community services. In the Midlands, we spokeout_Spring_11-p22-23:Layout 1 03/03/2011 15:35 Page 23 education & careers have a Clearing House Committee which meets every month and includes representatives from voluntary service providers and HSE. When an application for PA services comes in, we all work in partnership with the aim of utilising hours to the best possible effect and making sure no one falls between the cracks. Sometimes applicants have a preferred PA service provider but most of the time the committee simply looks at which agency is best placed or who has hours available at that point in time.” If IWA is selected as the service provider, Lisa’s first step is to organise an assessment in the person’s home. “We use a formal ‘self-assessment tool’ which focuses on three areas, namely how much support the person needs with personal care and family tasks, how much support they need within the home, and how much support they need in getting out to access educational, work and community activities.” Hours are allocated according to a Clearing House priority system. “Support with personal care tasks like getting washed and dressed is prioritised over tasks like enabling people to access their local community for social events. Sometimes this can be hard, because for some people getting out seems like the most important thing. I could recommend 20 hours of services and there may only be 10 hours available immediately. There are many people who would benefit from enhanced services but at the same time I know there is no one who can’t get out of bed in the morning. It’s up to me to keep advocating for people who need more hours and hopefully we will get there in the end.” While hours can be limited by funding, Lisa believes there are other ways in which IWA can improve its services. “Sometimes a service user will say, ‘If my PA could do this or that, it would really help me’. Part of my job is to research how we can train the PA to support the service user with tasks that might go beyond the standard training. For example, one of my younger service users uses a PEG feed (a feeding tube passed through the abdominal wall directly into the stomach to provide nutrition via liquids). His PA has recently been trained to operate the PEG feed so that he can have more freedom and choice in his daily routine, and so his mum can have a much-needed break. Support with clinical tasks like this can be vital in enabling people to live independently.” “New supports like this don’t happen overnight,” says Lisa. “First I have to research what is required, find an appropriate external training provider, and then draw up a policy for the new service. Throughout this process, I draw on the support and advice of one of IWA’s National Development Officers. The training is provided by a member of the broader community team, whether that is a physiotherapist or public health nurse, or one of the medical companies which supply equipment.” Lisa says it can be very rewarding to see the positive changes which can come about as a result of the PA service. “One of our service users, Julie Bailey, who has 22 hours each week, uses the service to enable her to access Lisa with service user Julie Bailey education and training facilities, and for personal care and support at meal times when she is there. This has enabled her to develop her artistic talents and to obtain FETAC Level 3 courses in Ceramics, Food & Nutrition, Computer Literacy and Preparation for Work.” As well as supporting services users, Lisa works closely with the PAs who deliver the service. “When a new PA starts, we carry out induction training which includes manual handling, hoist, health & safety, care practice & provision and adult & child protection. I also go out to the service user’s house to carry out on-the-job training with the PA. This is useful as it gives me an opportunity to do risk assessments, check all the equipment is working, and, if necessary, make referrals within the community team.” Lisa adds: “The economic climate has meant that the recruitment aspect of my job has reduced considerably. I haven’t recruited a new PA since last August, as our staff turnover is so low. More of my time is going into training existing PAs to cover annual leave, or in organising PA support days and reviews.” Lisa says it can be hard for PAs and service users to maintain professional boundaries. “Often PAs become very involved and take on too much. You can’t criticise this but sometimes you have to pull people back for the sake of everyone involved. I understand how this happens because I’ve been there myself. I love being in frontline service delivery but it’s particularly hard when you come across people in really tough situations. Part of me wants to say, ‘Now you come home with me for dinner...’, but I have to remind myself what my role is. I say to myself, ‘This is what I do, and I do it well’. It’s important to let things go when you go home at night.” Lisa is one of 30 ALS Service Co-ordinators working nationwide. If you are interested in finding out more about IWA’s Assisted Living Service please contact your local IWA office. The Association has recently started to provide the opportunity for individuals to purchase hours directly. Please contact Amanda on 061 313 691 or email [email protected] for information in relation to this. spokeout 23 spokeout_Spring_11-p25:Layout 1 03/03/2011 15:36 Page 25 access Virtual RELATIONSHIPS Internet dating is fast becoming the standard way to meet new people, but it can be hard to suss out the rules of the virtual dating game... CARTOONS BY JOHNNY CONNAUGHTON spokeout 25 spokeout_Spring_11-p27:Layout 1 03/03/2011 16:05 Page 27 travel 2 TERMINAL The opening of Dublin Airport’s Terminal 2 has been well-publicised in national media, but what does it mean for passengers with disabilities? Kiara Lynch finds out SET DOWN AREA A dedicated disabled set down area has been allocated in the Departures’ lane outside Terminal 2. BATHROOM FACILITIES ublin Airport’s Terminal 2 was officially opened on Friday 19th November, 2010. Terminal 2 is the new home for Aer Lingus, American Airlines, Continental Airlines, Delta Air Lines, Etihad Airways and US Airways. D SHORT TERM PARKING Dublin Airport has 40 disabled parking spaces positioned at the front of Level 1 and Level 2 of the Terminal 2 Short Term Car Park (max height 2.2m). To view maps or get directions to all airport car parks online, go to www.dublinairport.com/gns/to-fromthe-airport/car-parking/car-park-map.To access disabled parking spaces in the Terminal 2 Short Term Car Park at the special parking charge for disabled drivers (€9.50 per day, prevailing rates apply), it is imperative that you pre-book your car park space before travelling. Read how to pre-book parking in all airport car parks online at www.dublinairport.com/gns/to-from-the-airport/carparking/reduced-mobility LONG TERM PARKING There is a designated area of disabled parking spaces with no height restrictions located within the Long Term Red Car Park. Persons with reduced mobility who have a valid disabled parking permit can avail of the online pre-booking facility for the car park. This car park is serviced by a 24/7 wheelchair accessible shuttle bus, which operates from the car park’s bus shelter to and from the main passenger terminals. If assistance is required from the car park, OCS (One Complete Solution) can be contacted via the Reduced Mobility Help Point which is located within the bus shelter. Disabled toilets are located in all public areas. There is a range of facilities including: a shower facility located in the check-in area; two toilets with changing benches, one in the check-in area and one in the baggage hall; and three toilets where your own portable hoist can be used, located in the check-in area, international departure lounge and the baggage hall. There are also three privacy rooms which can be used if somebody needs to administer dialysis, etc. These are located in the check-in area, boarding gate area and US Pre-Clearance area. There is also a guide dog relief area located airside within the International Departure Lounge. OCS ASSISTANCE OCS has a designated point of arrival on the departures floor within the check-in building (adjacent to the designated disabled set down area). If a person requires assistance, it is imperative that the request be made when booking flights/making reservations with the airline, tour operator or travel agent. On arrival at Dublin Airport, passengers can use one of the help points located throughout the airport to gain assistance, or they can go to the OCS reception desk on the Departures floor. Alternatively, they can proceed directly to their check-in desk, where they should inform airline staff that they have requested assistance, and wait for a representative of OCS to arrive to provide assistance. If you have any feedback or queries in relation to the service provided, please feel free to contact Helen O’Connor, DAA PRM Access Officer on 01 814 4692 or email: helen.o’[email protected]. spokeout 27 spokeout_Spring_11-p28-29:Layout 1 03/03/2011 16:05 Page 28 Niall in action on the sled The husky EXPRESS Sledding with huskies is an exhilarating and surprisingly accessible sport, as Niall McDonnell discovered when he travelled to Norway with traditional musician Sharon Shannon as part of a new RTE series, Two for the Road. Joanna Marsden reports iall McDonnell is always up for a challenge and has never been camera-shy. In 2007, thousands of viewers watched as he climbed the Dublin Mountains to propose to his wife Kathryn as part of the RTE series Will You Marry Me? One of those viewers was fellow wheelchair user Edel Reck, who made a mental note that Niall would make an ideal candidate for a television series she was planning. Three years later, Edel approached Niall about participating in Two For the Road, a series in which people with different types of disability join with Irish celebrities to learn sports such as hand-cycling, rally-driving, dogsledding, skiing, tall ships sailing and horse-riding. “I was delighted to be asked,” says Niall, “And would have said yes to any of the sports. But I was particularly pleased when I heard I’d been chosen for dog sledding as I always had dogs as a child and was a keen hunter before I acquired my disability.” Niall was to learn how to dog sled during an intensive five-day trip to Villmark Lodge on the Norwegian-Swedish border in December 2010. “When the time came to leave our house, Saggart was under a foot of snow and I wasn’t sure I would make it. But my friend Trevor stepped in, N 28 saving the day by collecting me in his Jeep and driving me to Dublin Airport. We were laughing because with the weather the way it was, I could have nearly learnt to dog sled in Ireland.” It was night time by the time Niall arrived at Villmark Lodge. “It was so dark as I travelled from Oslo Airport to the dog farm that I couldn’t see much. But waking up the next morning, the scenery was absolutely spectacular. I looked out the window to see a winter wonderland; everything in sight was covered with a gentle frosting.” Niall was relieved to discover that the Norwegian cold wasn’t as insidious as Irish cold. “I hate the cold but over there it’s a very dry cold – the snow is so powdery that you can’t even make a snowball – and it doesn’t get into your bones the way our damp cold does.” Nonetheless, Niall and his hosts took great care to ensure he kept warm. “When you are in a chair, circulation can be an issue, so they give you a special ski suit with a very high tog rating. The metal on your chair gets very cold so you also need to make sure that the cold parts of your chair are not rubbing up against you, and that you have good gloves to push with.” For the duration of the trip, Niall was partnered with spokeout_Spring_11-p28-29:Layout 1 03/03/2011 16:06 Page 29 travel Sharon Shannon bonds with a husky traditional musician Sharon Shannon. “I didn’t know which celebrity I was going to get but it worked out brilliantly. Sharon is surprisingly shy, but once the ice was broken we were flying – she might be a celebrity, but essentially she’s a nice, normal person. She’s also a dog-lover, with three of her own at home, and she turned out to be pretty talented with the huskies.” Niall thinks the idea of having a celebrity and a person with a disability work alongside each other as they learn a new skill makes a lot of sense. “For both Sharon and myself, there is an element of the unknown when other people meet us, whether the unknown is there because of the talent or the disability. Both are outside people’s ordinary experience. Sharon is known for what she does, but it’s nice to see her out of that box. “There are so many angles to the show,” adds Niall. “It’s not just about the sport, it’s about watching a celebrity interact with someone with a disability, about showing that although we are different in some ways, we have the same ability to enjoy new things and help each other through the learning process. After all, disability is just part of the mix of all of us.” Niall hopes the series will encourage other people with disabilities to try new things. “There is so much you can do, and it’s better to be out there trying than sitting indoors thinking about what you are missing. I remember when I was in the NRH after my accident, I became so involved in coping with small things, like getting into my chair or going to the physio, that I couldn’t imagine having the energy to learn new skills. Over the years I’ve realised that learning simple tasks can be complicated, but when you get there – and you do get there in the end – it’s no different than for anyone else. Learning to drive is a good example of this. “Of course, specialised equipment has made a lot of sports accessible to wheelchair users,” adds Niall. “I used a specialised dog sled which was designed a couple of years ago by a friend of Frank, the guy who runs Villmark Lodge. But apart from sled, the experience was the same for me as it was for Sharon. I was still using dogs, still learning how to relate to them. In my experience, with a bit of thought, a solution can be found for most access issues. Frank was willing to look at every angle and he also offers a variety of other accessible winter sports including crosscountry sit-skiing. While the active dog-sledding is only suitable for adults and older children, a young child with a disability could be carried in the sled and enjoy it that way.” The accommodation at Villmark Lodge consists of logcabin style semi-detached lodges in a forest setting. “It’s not the Ritz Carlton, but there are roll-in showers and the beds are firm but comfortable, And more importantly, the food is fantastic and the beer even better!” Once Niall and Sharon had learnt the basic skills, they spent two days on trails around the surrounding countryside in the Fulufjell National Park. “You get to learn how many dogs are needed for different terrains. The dogs have great grip and I was surprised to discover that you only need two to four dogs if you are on the flat. After a while, I learnt how to assist the dogs myself by gripping the snow with my hands. Getting stuck in like that also helped keep me warm because I was more active.” Looking back on the experience, Niall says, “There were some funny moments and some scary moments. I enjoyed the process of building trust with the dogs. I also got the opportunity to see elk in their natural habitat. It was a bit like a winter safari. The whole trip was a fantastic opportunity to be as deep in the countryside as I have ever been, surrounded by snow, trees and frozen lakes – and far from paved roads. It bought back a closeness to nature that I hadn’t felt in years. I’d love to do it all again with Kathryn. It’s a highly active holiday and if you enjoy photography it couldn’t get any better; you can literally point the camera in any direction and be guaranteed the most beautiful picture.” Two for the Road was produced by Yellow Asylum Films after they were approached by Wexford-based wheelchair user and Associate Producer Edel Reck. Yellow Asylum Films developed the idea and was commissioned by RTE, in association with the BAI (Broadcasting Authority of Ireland), to make the series. The series will be broadcast on RTE later in the year - keep an eye on RTE schedules for further details. For further information on Villmark Lodge, visit www.villmark.info Niall enjoys the freedom of open countryside spokeout 29 spokeout_Spring_11-p31-34:1 Full Page 03/03/2011 16:06 Page 1 Saturday 21st May, 2011 at 10.00am in, The Ballroom, The Heritage Golf & Spa Resort, Killenard, Co. Laois Notice of 9th Annual General Meeting of I.W.A. Limited and Annual Conference 2011 A HOME OF MY OWN From Dublin Airport - Follow signs southbound for the M50. Go through West-Link Toll Bridge and take exit 9 heading southbound on the M7/N7 signpost for Cork. Continue on the M7/N7 and take exit for Monasterevin. Pass through Monasterevin village and travel for 3 KM and take right turn at Bolands Pub. Killenard village is located just 3 Km from this junction. Monasterevin The Heritage Golf & Spa Resort, Killenard, Co Laois Killenard Kilmullen N7 N7 Ballycarroll N7 Killinure Ballybrittas M7 Closeland Jamestown From Dublin City - Follow signs southbound for the M7/N7 signpost for Cork. Continue on the M7/N7 and take exit for Monasterevin. Pass through Monasterevin village and travel for 3 Km and take right turn at Bolands Pub. Killenard village is located 3 Km from this junction. N7 M7 M7 Please note the AGM & Conference is taking place in The Heritage in Killenard and NOT The Heritage in Portlaoise. From Limerick & Cork - Follow signs M7 north bound to Dublin. Leave the M7 at Junction 15 that is sign posted Killenard. When you turn off take the left and follow the signs for Killenard and Ballybrittas. You will approach a roundabout ahead and take a right on this and head for Ballybrittas village which is only 2 miles up the road take left turn for Killenard. This road is sign posted all the way for The Heritage Golf & Spa Resort and will take you 5 minutes max to Killenard. From Galway - Follow signs for Athlone N6. Bypass Athlone to Moate. In Moate turn right onto the N80 to Tullamore. From there travel to Portarlington and onto Killenard. THERE IS NO CHARGE FOR ATTENDING THE ANNUAL CONFERENCE AND AGM AGENDA SATURDAY 21st May 2011 SUNDAY 22nd May 2011 9.00am 10.30am Mass St John’s Church Killenard. Registration for AGM and Annual Conference Tea/coffee available before AGM 10.00am ANNUAL GENERAL MEETING Followed by Motions and Open Forum 12.00pm Official Opening of Annual Conference “A HOME OF MY OWN” 1.00pm Light lunch – tea/coffee, sandwiches 2.00pm Continuation of Conference 3.00pm Tea/coffee break 3.30pm Continuation of Conference 4.30pm Open Forum 5.20pm Conference adjourns for evening 7.30pm Gala Dinner IWA members are invited to submit : Motions for the Conference. Please use the Call for Motions (next page) and return to the Company Secretary by 5pm on Wednesday 20th April 2011. 11.30am Summer Fête All the Fun of the Fair, Including Barbeque, Music, Games, Competitions, Food Fair and lots more 3.30pm Close of Event Nominations for election of directors to the Board of I.W.A. Limited. Please send in nominations for the Board using the Nomination Form (next page) and return to the Company Secretary, I.W.A. Limited, Blackheath Drive, Clontarf, Dublin 3 by 5 p.m. on Friday 6th May 2011. The election will take place at the AGM on Saturday 21st May, 2011. spokeout_Spring_11-p31-34:1 Full Page 03/03/2011 16:06 Page 2 Nominations for Election to the Board of Directors of I.W.A. Limited As per the Articles of Association of I.W.A. Limited (Art. 47), one third of the Board of Directors shall retire from office each year. Election to be held at the Annual General Meeting at 10.00am on Saturday 21st May, 2011 in The Ballroom, The Heritage Golf & Spa Resort, Killenard, Co. Laois Nominations for election to the Board must be received by the Company Secretary, I.W.A. Limited, Blackheath Drive, Clontarf, Dublin 3, not less than 14 days before the Annual General Meeting, which will take place on 21st May, 2011 at 10.00am in the Ballroom, The Heritage Golf & Spa Resort, Killenard, Co. Laois. Please note: Nominees for election must be registered members of I.W.A. Limited and must be proposed by a registered member and seconded by one other registered member. If elected, the nominee will be required to give notice in writing of his/her willingness to serve on the Board of I.W.A. Limited. CLOSING DATE FOR RECEIPT OF NOMINATIONS IS 5PM ON FRIDAY 6TH MAY 2011 Nominee Name: ........................................................................................................................................................ Address:..................................................................................................................................................... ................................................................................................................................................................... ................................................................................................................................................................... Proposer Name: ........................................................................................................................................................ Address:..................................................................................................................................................... ................................................................................................................................................................... ................................................................................................................................................................... Seconder Name: ........................................................................................................................................................ Address:..................................................................................................................................................... ................................................................................................................................................................... ................................................................................................................................................................... Date spokeout_Spring_11-p31-34:1 Full Page 03/03/2011 16:06 Page 3 IWA Annual Conference 2011 CALL FOR MOTION(S) Members are invited to submit motion/s for debate at the Annual Conference. Please note the following: A motion may be submitted on the form below and further motions may be continued on separate pages. Each motion must carry the name and address of ONE proposer and the names and addresses of THREE seconders who must all be registered members of I.W.A Limited. When completed, motion forms should be sent back to the Company Secretary, I.W.A. Limited, Blackheath Drive, Clontarf, Dublin 3 by 5pm on Wednesday 20th April 2011. The Board may prioritise, integrate or re-structure motions of a similar nature before presenting them to the Conference. Members must be present to speak to their motions. Motions will be posted on the IWA website www.iwa.ie on Monday 16th May 2011. When complete, please detach this page and return to Company Secretary, I.W.A. Limited, Blackheath Drive, Clontarf, Dublin 3 by 5pm on Wednesday 20th April 2011. We, the undersigned, submit the following Motion/s for inclusion on the agenda of the IWA Annual Conference. Proposer Name: .................................................................................................................................................... Address:................................................................................................................................................. Seconders Name: .................................... Name: .................................... Name: .................................... Address: ................................ Address: ................................ Address: ................................ ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... MOTIONS ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... spokeout_Spring_11-p31-34:1 Full Page 03/03/2011 16:06 Page 4 IWA Annual Conference & AGM of I.W.A. Limited 2011 Hotel Accommodation in Co. Laois When booking hotel accommodation for the Annual Conference, please remember: You must book rooms directly with the hotel of your choice quoting hotel booking reference below. Please note there is a limited number of accessible rooms available in each hotel. To guarantee availability, rooms must be booked by 20th April, 2011. You must settle the hotel cost directly with the hotel. 5 high dependency rooms are available in the Heritage, Killenard. These rooms will be allocated on a first-come,first served basis. Contact Josephine Kenny, Service Co-ordinator, Tullamore on 057 935 0122. Hoists and shower chairs are also available on request from Josephine. There will be a complimentary shuttle bus service between local hotels and The Heritage Resort (except for those marked **). We recommend that persons staying in the accommodation marked ** provide their own transport. Hotels Tel Quote Booking Ref. The Heritage Golf & Spa Resort, Killenard, Co. Laois 057 864 5500 IWA Conference Maldron Hotel, Abbeyleix Road, Portlaoise ** 087 869 5900 Irish Wheelchair Association Killeshin Hotel, Dublin Road, Portlaoise ** 057 863 1200 Irish Wheelchair Association 086 237 6578 - Pat Flanagan Irish Wheelchair Association Liz Costello Hillcrest B&B, Killenard, Co. Laois 057 864 7026 Irish Wheelchair Association Barry Carroll Lodge, Killenard, Co. Laois 087 907 6585 Irish Wheelchair Association Self Catering Accessible Apartments, Killenard If you need advice on your hotel booking and reservation of tickets for the Gala Dinner please contact Lisa O’Meara at IWA - Tel 01 818 6486 Gala Dinner Booking Form Please reserve Name: (no of tickets) @ €50.00 each Saturday 21st May at 8pm in The Ballroom, The Heritage Golf & Spa Resort, Killenard, Co. Laois Please attach payment: TOTAL: PLEASE MAKE CHEQUES & MONEY ORDERS PAYABLE TO IRISH WHEELCHAIR ASSOCIATION Tel (H): Tel (M): Address: € spokeout_Spring_11-p36-37:Layout 1 03/03/2011 16:08 Page 36 THE SKY REALLY IS THE LIMIT June Scannell at 10,000 feet New Zealand is a country some get to visit once in a lifetime. But worldly June Scannell has travelled there several times. She writes about one exhilarating holiday experience and explains why New Zealand is more than a holiday destination for her s I sit here shivering in the midst of the most awful winter weather, I reminisce on this time two years ago when I enjoyed a most eventful month in New Zealand. But this was not my first trip to New Zealand and certainly wasn’t going to be my last. It all started back in the 1990s when I discovered that I had been adopted as a child. Being of a curious nature, I set A 36 out to trace my birth family. I discovered that I was one of six children, and eventually I got to meet my paternal siblings. The two who I identified with most, Shane and Tom, although originally from Limerick, had set up lives in New Zealand in the 1980s. When in 2008, Shane – who like me has muscular dystrophy – announced he was to marry to his girlfriend Amanda, I decided that it was one wedding I was going to attend. Accommodation was never going to be a problem, but who to take with me was. When none of my family was available to take a month’s holiday, my good friend Mary stepped in to the breach. At first I thought she didn’t really mean it: every minute of every day for a month with me? She would need indefatigable patience. But she did, and I could not have asked for a better companion/PA. I am delighted to say that throughout our trip in New Zealand there wasn’t a moment of disharmony between us. We laughed and sang from one end of the day to the other. Incidentally, Mary sings from the time she gets up in the morning until her head hits the pillow at night. She doesn’t understand why other people don’t feel the need to stand up and sing at every party or gathering they attend. And she is a very respected singer. Last year, for instance, she travelled to Vienna as part of a local choir to perform at a major festival. In January 2009, after a long flight and stopovers in Singapore and Auckland, we arrived in Wellington. The wedding was a great success and the day after we left Amanda and Shane to enjoy their first week of wedded bliss and set out on a road trip with my other brother Tom June (left) an d friend Mar y take a ‘leisu rely’ boat rid e spokeout_Spring_11-p36-37:Layout 1 03/03/2011 16:09 Page 37 travel and his wife, Sarah. Our trip brought us through the Roturua region, famous for hot springs and lakes – there is never a problem with hot water there – as well as a tourism industry built on outdoor pursuits. During the trip we tasted wonderful wines in beautiful vineyards and eventually travelled to Lake Taupo, New Zealand’s largest lake and the highlight of our trip. While at Lake Taupo we spotted a billboard advertising skydiving. Mary, thinking aloud, wondered what it would be like to try it. I said, jokingly, maybe I could have a go as well. The next thing we knew Tom was on the phone and had us booked in to dive at 9.30 the next morning. He discovered that my being a wheelchair user presented no problems. With no time to panic (although I can’t say I had my best night’s sleep that night) the next morning the four of us arrived at the airfield where we were each assigned a jump partner. When we were putting on a particular type of boiler suit, I notice a warning sign about the risk of dislocating collarbones. I laughed as I was scheduled to get a new one shortly afterwards, so if anything happened I was sorted. The hardest part of the experience was getting me from my chair into the plane, as the plane was quite small. As we ascended, my jump partner secured himself on to my back for the skydive. The higher we climbed, the more my heart pounded. Too late for a change of mind and to turn back; I was to be the first to jump and when the door opened it was quite literally the most terrifying moment in my entire life. I was sure I would lose my breath the minute we hit the air outside. But it was nothing like I expected. Another person with a camera attached to his wrist jumped simultaneously and took photos and video on the way down. It was mind blowing to look down through fluffy clouds and see the lake, tiny houses, roads and cars grow bigger as we raced closer to the ground. It was an exhilarating experience for someone like me who could hardly jump off a chair on my best days. We landed practically on the spot we took off from. It may be an overused word, but in this case, the experience was literally fantastic. For a moment I felt completely revitalised and almost indestructible. Naturally food was not mentioned before the dive but once back on earth we celebrated with a large slap up breakfast. And we all received a video and photos of the whole experience so we could relive it with our families and friends. Continuing on the road, now in a car full of adrenalin junkies, we next travelled to Huka Falls, a thermal river with a waterfall. We took a trip on a high-speed boat, which jetted around the river at incredible speeds. Talk about an adrenalin rush, I thought I would never see dry land again. After the road trip we returned to Wellington where we all enjoyed a couple of relaxing weeks and Mary took every opportunity she could to sing. It’s now two years later and even though the days are cold, the memories stay with me and fill me with warmth. Now that I have two brothers married in New Zealand, I keep in constant contact with them using Skype and I also have a strong affiliation with that part of the world. I have been lucky to make a number of trips to New Zealand, one being a round-the-world trip that took in Hawaii and shopping in New York, as well as visiting South Africa a number of times – but that’s a story for another time. I would advise anyone reading this who would like to travel to faraway places to do all they can to take that holiday and never to be afraid to try something new. June with her daughters Elaine and Regina, husband Liam and son Eoin in Blarney June at the wedding with her paternal siblings (from left) Tom, Shane and Áine A FEW TRAVEL TIPS FOR THE LONG HAUL TRAVELLER My brother Tom’s mother-in-law gave me these useful tips. Tragically, she and Tom’s father-in-law were killed in a car crash in Limerick two years ago. “When you board the airplane, read for a while or watch a movie. Eat your meal, then take a sleeping tablet and sleep for a few hours. You will wake up fresh as a daisy and ready to take on whatever comes your way.” spokeout 37 spokeout_Spring_11-p40:Layout 1 03/03/2011 16:09 Page 40 travel HOLIDAYING AT HOME With spring in the air, the seaside and countryside suddenly becomes more inviting. Colette Molloy suggest three accessible destinations for a summer holiday or short break BALLYLIFFIN LODGE & SPA HOTEL Ballyliffin, Inishowen Co Donegal Tel: 074 937 8200 www.ballyliffinlodge.com The four Star Ballyliffin Lodge and Spa Hotel, set in the village of Ballyliffin, has spectacular views of the Inishowen coastline and Malin Head. There is designated parking adjacent to the entrance which has level access. The beautifully designed interior combines traditional charm and luxury. There are three wheelchair accessible bedrooms located on the first floor and accessed by lift, making this hotel ideal for a small group booking. The spacious bedrooms each have an en suite wet-room with ample grab rails and a shower chair. There are several dining options provided by the award winning Executive Chef and offered in a grand and relaxed setting. ASHLEE LODGE Tower, Blarney Co Cork Tel: 021 438 5346 www.ashleelodge.com TRIM CASTLE HOTEL Trim Co Meath Tel: 046 948 3000 www.trimcastlehotel.com Ashlee Lodge, a contemporary four star guest house, offers superb accommodation in a relaxed and peaceful atmosphere. Set in its own grounds just 2km from Blarney and a ten-minute drive from Cork City, the location is an ideal base for touring the Beara Peninsula and West Cork or visiting the nearby famous Blarney Woollen Mills. The house has level access and a designated parking space. There is one wheelchair accessible bedroom located on the ground floor with direct ramped access from the car park. The en suite wet room with roll-in shower has adequate grab rails and fixed seat. Tower Village has many restaurants and traditional pubs offering great food and entertainment. Contemporary elegance is the style of the beautifully appointed four star Trim Castle Hotel located in the heritage town of Trim and overlooking Trim Castle. The entrance is level with two designated parking spaces adjacent and a further two in the underground car park. There are four accessible bedrooms located on the second and third floors with lift access. Each bedroom has room for a hoist and an en suite wet room with a roll-in shower, grab rails and fixed seat. The hotel offers several dining options from casual dining to a candlelit dinner. The heritage town of Trim is a 40-minute drive from Dublin City Centre and offers a wealth of historic interest. Need to hire a hoist? In the east, contact JS Dobbs, Baldoyle, Dublin 13. Telephone 01 839 1071 or www.jsdobbs.ie In the north/north-west, try Evolution Healthcare, Co Tyrone. Tel: 028 8772 7855 www.evolutionhealthcare.co.uk Somewhere to recommend? Contact Colette Molloy [email protected] or 01 818 6485 40 spokeout_Spring_11-p41:1 Full Page 03/03/2011 16:10 Page 1 Just a sample of some of the events taking place at Cuisle for 2011. We can design a break to suit you as an individual or as a group, ensuring that your time spent with us will be the perfect reason for a return visit. Fishing Breaks - 18th to 22nd July, 8th to 12th August, 5th to 9th September. It’s time to get the fishing rods out again and enjoy a relaxing fishing break on the banks of the River Suck. Fishing tackle, bait, expertise and advice will be available throughout the week from our resident angling advisor. Whether you are a beginner or an experienced angler, there’s something here for you. Breaks include 2/3 days fishing and transport to and from the bays. Easter - 21st to 25th April Celebrate Easter with a relaxing break at Cuisle and the opportunity to partake in the Easter Ceremonies. Don your Easter bonnet and join in the fun of the Roscommon Easter Parade. Roscommon Races - 9th May, 12th & 13th June, 4th & 5th July, 2nd & 15th August Roscommon Races are where you will see some stars of the future – a favourite course with trainers for introducing young horses to racing. With a designated disabled viewing area, it is the perfect day out. Admission to the races and transport to and from the track is included in your break. Health & Beauty Week – 16th to 20th May, 30th May to 3rd June Escape from your everyday life and join us for some well deserved pampering. Indulge in treatments that are therapeutic and relaxing. Our therapists specialise in Indian Head & Shoulder Massage, Full Body – personalised to suit your individual requirements, and Hand & Arm Massage. Treat yourself to a visit to our Leisure Suite, and relax in our Jacuzzi or sauna – a sure way to ease away the tensions of the day. At the Beauty Workshop our Make-Up Artist will teach you how to devise a professional make-up look that will work for you. To finish off your break, visit Classic Cuts Hair Salon to look and feel good. Nominal charges apply for Classic Cuts and all treatments. Call 090 666 2277 for reservations Cuisle Holiday Centre , Donamon, Co. Roscommon Tel: 090 666 2277 | Email: [email protected] | www.cuisle.com spokeout_Spring_11-p42-43:Layout 1 03/03/2011 16:11 Page 42 Vertical GARDENING Helen Rock reports on a new space-saving trend for gardening on vertical spaces like walls and fences ertical gardening – that is planting up walls and other structures rather than on the flat – is a relatively new concept in horticulture, though not in nature, where a rock face or the sides of a longdisused quarry can be adorned with the most wonderful collections of wild and naturalised plants. Over the last dozen or so years, a French botanist, Patrick Blanc, has made it a sustainable art form and now buildings in Paris, London, New York and all over the world are clad with green mantles of beautifully arranged plants that bring joy and health to many people, both inside and out of the buildings they so gracefully adorn. Now vertical gardening has gone mainstream and manufacturers have come up with all sorts of adaptations to suit most domestic situations, from planting towers (www.flower-tower.co.uk) and planting bags for walls and fences (see Verti-Plant from www.burgonandball.com) to what looks like a very promising new system from Tree Box (www.treebox.co.uk). A relatively new company, Tree Box specialises in green walls, edible walls and vertical allotments that aim to provide robust and instant urban greening systems for gardens, yards and balconies, minus the complications. According to Bella d’Arcy Reed, their representative at a recent garden event in London, Tree Box’s modular planting system is ideal for those who like to garden but have trouble bending over or getting around and who really miss their gardening activities. “Conventionally raised beds are presented as a solution for people’s lack of mobility,” she said, “but in reality they may often find it difficult to reach across and tend their plants. By providing a vertical planting system that is fixed to a wall at a convenient height, Tree Box believes they have come up with a solution that will help the less able to continue enjoying their favourite pastime. There are two planting kits available and both support substantial troughs. These hold soil into which a selection of herbaceous or annual plants, vegetables and herbs, can be planted and tended easily, they say. The kits come with a built-in water reservoir or simple irrigation system, which can be topped up with a watering can when required. With basic DIY skills, a friend or carer can easily V 42 Tree box herb bay assemble an Easiwall or Herb Bay kit and fix it to a balcony, wall or free-standing support. The Easiwall system is made from 80 percent recycled polypropylene in the UK and consists of five specially designed troughs that can support enough planting substrate to sustain plants for several years and also have a deep enough root run for crops such as carrots. Their second system, the Herb Bay, is a wooden frame that houses removable troughs into which herbs or other plants can be grown. It can be placed in the most convenient spot for the user and should they ever move home, the garden they love can go with them. Green or living walls enhance air quality by working as purifiers, absorbing CO2 and other pollutants. If incorporated into a building’s ventilation system, they can be used to actively cool and clean the air. And, if the living wall is used in conjunction with a rainwater harvesting system, then rainwater run-off is reduced and soon-to-be-metered tap water is saved. Then there’s the added bonus of creating a safe haven for myriad forms of wildlife – for butterflies, bumblebees and small birds. In effect, you are making a lovely living wall that, with the right mixture of plants, will provide you with an everchanging picture of great natural beauty where before there was nothing but a bare surface. A vertical allotmemnt by Tree Box spokeout_Spring_11-p42-43:Layout 1 03/03/2011 16:12 Page 43 living A close-up view of the Easiwall Wyevale by Tree Box The Chiswick by Tree Box WHAT’S ON GARDEN WORK The extra hour of evening light will be back with us before the end of March, which is great news for everyone. From then on, we can anticipate staying out later in our gardens as the light advances and the nights grow warmer, perfect for prowling around your garden and taking stock of what’s good and what could be better. This is the time of year when bare patches of earth stare you straight in the eye. These – if you have nothing planted there and still lurking below ground – are planting opportunities, in this great planting season. It’s a great time to plant trees and shrubs, when the weather is fine and the soil or compost not too wet. Plant all types of hedges now – except broad-leaved evergreens which are best left till early April. It’s a good time to plant clematis and other wall shrubs. The clematis family like to have their feet shaded and cool, so placing flat stones over the roots is recommended if no other shade is available. Water the wall shrubs in very well as the masonry sucks up more than its fair share of moisture. SPRING TONIC When the tops of young stinging nettles (Urtica dioica) are used as a vegetable (toss until wilted in butter, add sea salt and a little lemon juice and eat with brown bread, if liked) they are a good spring tonic. They increase sluggish blood circulation and are good for clearing the skin of small eruptions. Chickens, now the height of garden fashion, like nettles too. A clump of them growing in a semi-wild, set-aside part of the garden where their invasive habit won’t matter so much, will attract ladybirds, which seem to have become more elusive over the last few years. In their turn, ladybirds eat greenfly and other sap-sucking aphids that damage your plants. Incidentally, experiments in growing stinging nettles between rows of peppermint showed that the mint’s natural oil content increased to 2.5 percent from less than 1 percent when grown without. Sat 5th March: Spring Plant Fair at Bellefield House, Shinrone, Birr, Co Offaly (10-30am-4.30pm). This promises a cornucopia of wonderful plants for sale, including bulbs, perennials, fruits, herbs, shrubs and trees. Bellefield is the home of garden architect and plant collector Angela Jupe (see www.angelajupe.ie for details) and this a great time to see her garden and its evolving plant collections, including one of snowdrops. If you miss it now, then you could see it later when the gardens open to the public as part of the new Lough Derg Garden Trail. For more go to: www.loughderggardens.com Sun 6th – Sat 12th March: National Tree Week. See www.treecouncil.ie for details of events. Sat 12th & Sun 13th March: Helleborus Days at Mt Venus Nursery, which is situated in the lovely walled garden of Tibradden House, Mutton Lane, Rathfarnham, Dublin 14 (11am-5pm). Because the hybrids vary so greatly, the best time to buy these beautiful plants is when in flower. That’s why every year in mid March Mt Venus, which has a good stock of excellent garden-worthy varieties, holds its special Hellebore days with free guided tours of the plants given by Oliver Schurmann throughout the days. Well worth a visit now, and at any time from March to October. Sat 9th April: Dublin Alpine Garden Society Show (from 1pm) at Cabinteely Community School, Johnstown Road. Fascinating displays and unusual plants for sale. Sun 17th April: Plant & Garden Fair at Fota House, Carrigtwohill, Co Cork (from 10.30am). www.fotahouse.com Sun 8th May: Rare & Special Plant Fair at Birr Castle Demesne, Co Offaly (10am-5pm). Entry £6.50. Good plants and food for sale in a beautiful and historic setting. Sun 15th May: Irish Specialist Nursery Association sale at Larch Hill, Kilcock, Co Kildare. Details on www.isna.ie Tues 24th – Sat 28th May: Chelsea Flower Show, London. Book online at www.rhs.org.uk or telephone 0044 121 767 4063 spokeout 43 spokeout_Spring_11-p45:Layout 1 03/03/2011 16:12 Page 45 motoring Simple mobility Easy release hand brake SOLUTIONS Some simple, low cost adaptations can make motoring easier for many people with limited mobility says Niall McDonnell, who works in IWA’s National Mobility Centre T SWIVEL CUSHION A padded turning cushion may be helpful for use when exiting car seats or when getting up from chairs and beds. It is used for rotation while seated and allows swivel transfer without painful jarring or twisting. Swivel cushions are available with removable fleece covers, which are machine washable for easy cleaning. PANORAMIC MIRRORS Reduce blind spots and get a wider angle of vision than a flat rearview mirror with a panoramic mirror that fits onto the existing rear view mirror. Available with a slide mechanism that adjusts to suit all types of cars. HANDYBAR This stainless steel bar (pictured right) slips into car door latches to provide secure assistance when getting in and out of the car. The Handybar acts as a portable grab rail and has a soft grip, non-slip handle for extra comfort. It fits the majority of car frames with the U-shaped striker and may be helpful for individuals who have difficulty getting up from a seated position. This handle also doubles up as a seatbelt belt cutter in case of an accident. EASY RELEASE HANDBRAKE This car adaptation (pictured above right) allows operation of most vehicle parking brakes for those with arthritis or other hand disabilities. This simple but effective mechanism attaches to the parking brake to bring the operating handle nearer to the driver and to allow the driver to operate the parking brake with one easy action requiring minimal dexterity of the hand. SEAT BELT EXTENSIONS There are various seatbelt extensions available to aid drivers/passengers in reaching the seatbelt receiver. SUN VISOR EXTENSIONS A Sun Visor Extension simply clips onto your car sun visor to allow better vision when facing the sun. HARNESSES There are various belts and harnesses available designed to offer postural support or in the case of learning difficulties and challenging behaviour a certain degree of restraint. In addition to the items above, there are a great many other things that can be done to a vehicle to help keep somebody mobile, from hand controls, flip down accelerator peddles and infra red systems to help people drive, to ramping, hoists and floor lowered vehicles for those travelling as passengers. Don’t be afraid to contact IWA’s Mobility Centre in Clane on 045 861 346 or your local adaptations company for advice. The solution may be close at hand! The Handybar Images courtesy of Motability Ireland here are a great many people in Ireland who experience difficulty driving or being a passenger in a motor vehicle as a result of a low level of disability. While there are plenty of adaptations available for amputees and wheelchair users, the smaller adaptations tend to be overlooked. This is a pity because the fact is that there are a great many small and cost effective items available on the market. These items can make a huge difference to people’s comfort and safety, whether that means assisting a person in entering a vehicle or operating some of the controls. Some examples include: Image courtesy of Mobility Ireland spokeout 45 50th Book order form:1 Full Page 03/03/2011 16:58 Page 1 Celebrating 50 years of the Irish Wheelchair Association EXTRAORDINARY LIVES ORDER FORM November 2010 marked the 50th anniversary of the Irish Wheelchair Association and to celebrate this historic occasion the Association has produced a commemorative book, Extraordinary Lives. The book celebrates not only the history of IWA, but the story of a changing Ireland, where people with disabilities have gone from living ‘behind closed doors’ to enjoying full and independent lives in their communities. Extraordinary Lives will be launched by RTE Presenter Myles Dungan, during a formal reception in Croke Park. IWA would like to invite all Spokeout readers to this event which takes place on Wednesday 23rd of March at 6:00pm. If you would like to attend this event please contact the Communications Department on 01 818 6456. To secure your copy of Extraordinary Lives, please complete this order form and return to Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3. The cost of the book is €24.99, but it is available to members at a special price of €20.99 including postage and packaging. Name .................................................................................................................................................................................................. Address .................................................................................................................................................................................................. .................................................................................................................................................................................................. .................................................................................................................................................................................................. Telephone Email .......................................................................................... Number of copies required .......................................................................................... .................. I hereby enclose: Cash For the amount of: Cheque € Bank draft Postal order ............................................................................... Please complete this order form and return to: Information Dept, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3. Please make all cheques and postal orders payable to Irish Wheelchair Association. Cheques , bank drafts or postal orders are the preferred method of payment as IWA cannot be held responsible for cash payments lost through the post. spokeout_Spring_11-p49:Layout 1 03/03/2011 16:13 Page 49 sport Father of the PARALYMPICS Paralympic sports fan Jim Hayes discovers more about the man behind the foundation of the Paralympic Games, rehabilitation pioneer Sir Ludwig Guttmann WA has just celebrated 50 years since its foundation. From day one, sport has been an inseparable part of the organisation’s activities. From small beginnings, we now have IWA athletes travelling to the four corners of the world, with the Paralympics being the highlight of their sporting calendar. But just how did the Paralympics begin? Competitive sport for athletes with a disability is a relatively new phenomenon. It is generally agreed that the Paralympic movement towards competitive sports for individuals with a disability began in 1948 in Stoke Mandeville, England. Sir Ludwig Guttmann, a German neurosurgeon, began work at the Stoke Mandeville Spinal Injuries Unit in 1944, one year before the end of World War Two. Dealing with limited resources, inexperienced staff, and a prevailing attitude that rehabilitation of patients with spinal cord injuries was impossible, Guttmann looked for ways to inspire and integrate the ex-soldiers in his care back into society. As part of his innovative treatment programme, he made work an everyday part of each patient’s activities. He wanted his patients to resume normal life as quickly as possible. Given that most of his patients were young, formerly active individuals, sport was part of that normal life too. Guttmann realised that organised sports could work wonders in motivating patients to exercise, especially the young and formerly active war veterans he had in his care. Sport was of course critical to building their strength; their future depended on being able to lift themselves into a wheelchair. Guttmann made sport mandatory, and it soon formed an essential part of the programme at Stoke Mandeville. It was not a question of whether they would like to do sport; no, it was part of all treatment, like taking medicine, or doing physiotherapy. And Guttmann would make sure they did it. Archery competitions led to the first Stoke Mandeville Games for the Paralysed, held on July 28th, 1948, and involving 16 competitors. It was no accident that these games opened on the same day as the Olympics. Guttmann wanted his games to have a larger forum. He envisioned international games: Olympics for athletes with disabilities. The Stoke Mandeville Games were held yearly after 1948, and became international in 1952 with the I Sir Ludwig Guttmann, founder of the Paralympics, speaking at the Tokyo Paralympic Games in 1964 addition of a Dutch team of competitors. That same year the International Stoke Mandeville Games Federation, or ISMGF (later the International Stoke Mandeville Wheelchair Sports Federation, or ISMWSF) was created, and it decided the games should be held in the country hosting the Olympics. In Rome in 1960, immediately after the Olympics, Guttmann watched as 300 athletes entered the Olympic Stadium for the first Paralympic Games, a competition which has since become second in size only to the Olympics. Instead of resting on his laurels, Guttmann realised his work was just beginning. As president of the International Sports Organisation for the Disabled (ISOD), founder of the British Sports Association for the Disabled, and worldrenowned expert in his professional field, he worked tirelessly to improve the day-to-day lives of those with disabilities. Sir Ludwig Guttmann passed away in 1980, having seen the influence of his games touch thousands of people worldwide. His vision continues to inspire all those who strive for his dream: the full integration of those with disabilities into mainstream society. Jim Hayes is involved in IWA’s Dublin Swifts Club. He is also compiling archive material on the history of IWA Sport. If anyone has stories, video or photographs that could be archived for posterity, contact Jim at email: [email protected] or tel: 087 276 4922. spokeout 49 spokeout_Spring_11-p51:Layout 1 03/03/2011 16:14 Page 51 sport SPORT FOCUS 2011 With a packed calendar of events and mounting competition in the run up to the London Paralympics, 2011 promises to be another exciting year for IWA Sport, says Nicky Hamill, Director of Sport riends, supporters, staff and athletes closed off 2010 in style with a superb night in Bewleys Hotel celebrating 50 years of IWA Sport. It was a particular honour to be joined on the night by Dr Oliver Murphy, one of our founding members, and by Rosaleen Gallagher, niece of athlete Rosaleen Gallagher, who has kindly donated two of her aunt’s paralympic medals to IWA-Sport. The highlights of the night were the audio visual presentation recounting our history and the unveiling of the IWA Sports Hall of Fame. The Hall of Fame is displayed in the lobby of the Dr Oliver Murphy Sports Centre, Clontarf, and readers are encouraged to come in and view it at any time. 2011 promises to be another busy sporting year with many sporting events scheduled. IWA sport will continue to offer many of our existing programmes such as multisport junior clubs, monthly swimming development training sessions, sports-specific clubs at junior and senior level, summer camps and our programme of National Championships. New to our programme this year will be an Athletics Emerging Talent initiative. This will be a monthly session available from March which will offer coaching expertise across a number of athletics disciplines. If you would like more information regarding any of the above opportunities, please contact any of our Sports Development Officers or the main IWA Sport office. At senior level, we look forward to our athletes and teams attending the Archery World Championships in Italy, European Swimming Championships in Berlin, European Rugby Championships in Switzerland and European Table Tennis Championships in Croatia. At Junior level, a team will compete at the World Junior Athletics Championships in Dubai. The race for Paralympic qualification to London 2012 F Pictured enjoying the 50th Anniversary Sports celebrations are left to right: John Finn, IWA Sport Chairman; Eileen O Mahoney, IWA President; Dr Oliver Murphy, founding member of IWA; Rosaleen Gallagher, niece of athlete Rosaleen Gallagher; Kathleen Mc Loughlin, IWA CEO begins in earnest this year so the very best of luck to all of our athletes who are aiming for Paralympic qualification. Finally, many thanks and best wishes in advance to all of our athletes, coaches and staff who will once again fly the IWA Sport flag at all levels in 2011. To find out more about IWA Sport, contact: • Eastern region: Mark Barry [email protected] • Western Region: Rena McCarron Rooney [email protected] • Southern region: Paul Ryan [email protected] • Midlands: Orla Dempsey [email protected] KEY EVENTS TO LOOK FORWARD TO IN 2011 April June July October October October/May July 2nd World Junior Athletics Championships Archery World Championships European Swimming Championships European Rugby Championships European Table Tennis Championships Irish Stairlifts & Bathrooms Basketball league IWA & CPSI National Athletics Championships Dubai Italy Berlin Switzerland Croatia IWA, Clontarf Santry spokeout 51 spokeout_Spring_11-p53:1 Full Page 03/03/2011 16:15 Page 1 Support IWA and you could win... 1ST PRIZE 2ND PRIZE €2,000 3RD PRIZE €1,500 €500 EVERY MONTH! €10,000 Plus... I N O UR AUGUST SU W A R PE R D ! IWA has a presence in every county in Ireland. Last year we provided over 2 million hours of services to people with disabilities nationwide. You can help by entering our Monthly Draw for as little as €12.50 per month. €12.50 €50 €25 7 entries in monthly draw 3 entries in monthly draw €50.00 per month 1 entry in monthly draw €25.00 per month Name ............................................................................................. €12.50 per month Email .................................................................................. Tel ................................................................................. Address ........................................................................................................................................................................................................................................................................................ Name of Bank.................................................................................................... Address of Branch ................................................................................................................................ Name of Account Holder(s)........................................................................................................................ Account Number Bank Sort Code Signature ...................................................................................................................... If you are on an IWA payroll and wish to have your monthly donation deducted from your salary please tick here ............................................................................................................ Start Date ......................./........................................../ ....................................... IWA can claim up to an extra 41% in tax refunds from the Government if your donation is over €250 per annum, at no extra cost to you. All you need to do is insert your pps number here. Signature ................................................................................... PPS No: Please return completed form to: IWA Fundraising Department Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3 spokeout_Spring_11-p55:Layout 1 03/03/2011 16:16 Page 55 news ST PATRICK’S DAY ANGEL As part of this year’s St Patrick's Day celebrations IWA will be selling its distinctive St Patrick's Day Angel Pin in Dublin and Cork City. The Association is currently seeking volunteers to help sell the pin in the lead up to March 17th, 2011. If you are interested in supporting IWA by selling St Patrick's Day Angel Pins in either Dublin or Cork City, please contact Jack Doyle, Volunteer Coordinator, on 087 055 6965 or email: [email protected]. For further information about the St Patrick's Day Angel Pin campaign, log onto www.iwa.ie/angel FRIENDS OF IWA MONTHLY DRAW NOVEMBER 2010 WINNERS 1st Prize €2,000: Myra Cummins, Tuam, Co Galway 2nd Prize €1,500: Catherine Earley, Sixmilebridge, Co Clare 3rd Prize €500: Bill Guest, Nenagh, Co Tipperary DECEMBER 2010 WINNERS 1st Prize €2,000: John Fitzsimons, Clontarf, Dublin 3 2nd Prize €1,500: Maria Mulhern, Lifford, Co Donegal 3rd Prize €500: Tom Costello, Kilcolgan, Co Galway JANUARY 2011 WINNERS 1st Prize €2,000: ROC staff, Merlin Park, Galway 2nd Prize €1,500: James Crotty, Killiney, Co. Dublin 3rdPrize €500: Eunice Toland, Clonmany, Co Donegal Flora Women’s Mini Marathon Support IWA this summer by taking part in the Flora Women’s Mini Marathon. This year’s mini marathon takes place on Monday June 6th, 2011. Entry forms are available online at www.florawomensminimarathon.ie or in the Evening Herald every Wednesday and Saturday from March 2nd, 2011. Closing date for entries is Wednesday, April 27th, 2011. All money raised is used locally to support people with disabilities living in your community. SUPER FORD FOCUS CAR DRAW IWA is proud to announce the winner of the Super Ford Focus Car Draw which took place on December 15th, 2010. Congratulations to Agnes Waters from Fethard-OnSea, Co Wexford, who Jack Doyle, IWA Volunteer Co-Ordinator, collected her brand new Peadar Lacey, Boland Motors, Waterford, Ford Focus earlier this Agnes Waters winner of new Ford Focus and Sinead Foskin IWA Area Manager month. The winning ticket was sold by Isobel Tubritt from New Ross, who receives €200. All proceeds from the sale of tickets will go towards maintaining the essential services IWA provides in the areas in which tickets are purchased. Innovative toilet installed in Carmel Fallon Holiday Centre IWA’s Carmel Fallon Holiday Centre in Clontarf has installed an innovative Clos-o-Mat toilet in the centre’s atrium bathroom, to enable members to go to the toilet unaided when visiting the centre. Whilst it looks like a traditional WC, the Clos-o-Mat incorporates integral washing and drying facilities, simply triggered by pressure on the flush pad when sat on the toilet, which enable the user to be hygienically clean after toileting with little or no help from a personal assistant. The reduction in reliance on a personal assistant enhances the user’s independence and privacy. IWA’s Clos-o-Mat features a plinth to raise the unit to enable easy side transfer from a wheelchair, and a touch sensitive hand/foot switch for users who are unable to use their hands or body to press the standard flush pad. Karen Cronin, Manager of the Carmel Fallon Holiday Centre, explained, “The atrium is the hub of all activity at the Centre, which caters for people with physical and sensory disabilities between the ages of 13 and 65. To us, it was the ideal Karen Cronin, IWA; Declan Hamilton IWA; place to install a ClosAndrew Smyth Clos-O-Mat; and Anne Lowry, IWA o-Mat, as all guests and staff can use the new toileting facility. It can be used by everyone, regardless of their level of disability.” Clos-o-Mat was kindly given to the Camel Fallon Holiday Centre by manufacturer Total Hygiene. Clos-o-Mat is available in Ireland through MMS Medical. spokeout 55 spokeout_Spring_11-p56:Layout 1 03/03/2011 16:17 Page 56 news GRANT FUNDING FOR HOUSING ADAPTATIONS Government announces 2011 capital provision of €79.46 million for housing adaptation grants for people with disabilities and older people n February 15th, 2011, Michael Finneran, Minister for Housing and Local Services, announced the annual 2011 capital provision of €79.46 million for grants to improve or extend the private homes of people with a disability and older people. Under the Housing Adaptation Grant for People with a Disability up to €30,000 is available for improvement works and extensions to facilitate a person with a disability within their home. This work will typically include the interior remodeling of the home and/or the building of a bedroom and/or bathroom extension. The Mobility Aids Grant Scheme is available to fast track smaller jobs such as a bathroom adaptation, a stair lift installation, provision of ramps at the home entrance, etc. Grants of up to €6,000 are available to address these smaller jobs to improve the accessibility of a privately owned home. O MEANS TESTING Both of these grants are means tested. To be eligible to receive a full grant, the income of the householder must be under €30,000. Where the householder’s income exceeds €30,000, the grants will be paid on a sliding scale up to a maximum householder income of €65,000. Where the householder’s income is over €65,000, no grant is payable. To enquire further regarding grant application and related procedures, contact the loans and grants department in your local city or county council. 56 The Department of the Environment website, www.environ.ie, gives details of how this €79 million of grant funding is allocated to each city and county council. Dolores Murphy, IWA Housing Officer, emphases that the figure of €79.46 million is the combined amount from the Department of the Environment and the 1/3 portion which has to be contributed from each local authority in order to draw down the Exchequer funding. “The Exchequer portion of the grant funding is in reality approximately €63 million, a 20 percent reduction on 2010 funding.” Dolores adds, “IWA is obviously very disappointed with the 20 percent grant funding reduction. Of equal concern is the fact that many city and county councils cannot make up the 1/3 of the grant allocation required and consequently they will not be able to draw down and use this Exchequer grant funding allocation. IWA would like to see Central Government reinstate the 20 percent funding reduction and operate a more flexible system to ensure that all grant funding from the Department is fully used for home adaptation – an absolute necessity for IWA members and all people with limited mobility.” This capital funding does not include expenditure by local authorities on improving and extending their own social housing stock. If you have a query relating to housing adaptations, contact IWA’s Housing Officer Dolores Murphy on 01 818 6425 or get in touch with your local council. spokeout_Spring_11-p58:Layout 1 03/03/2011 16:18 Page 58 news KANCHI EXPORTS ABILITY AWARDS Kanchi and Telefonica have announced a global franchise collaboration which will see Kanchi’s Ability Awards rolled out across five new countries over the next five years. As founder of Kanchi and the Ability Awards, which began in 2005 with the support of Telefónica O2 Ireland, Caroline Casey will co-chair an international advisory group with Luis Abril, Secretary General, Telefónica SA. Through this, Telefónica and Kanchi will lead a global business movement for 100 percent inclusion of people with disabilities by promoting the disability business case on a global scale while establishing best practice for the employment and inclusion of people with disabilities within business. The first of the five international awards, the Telefónica Spanish Ability Awards, took place in Madrid in January, in the presence of HM The Queen of Spain. Although the other countries have not yet been selected, initial discussions have identified opportunities within Europe and Latin America in particular. The first of its kind in the world, the O2 Ability Awards was first established in 2005 and since then over 100 organisations have been recognised for embracing Caroline Casey, Kanchi founder; Cedar Alierta, Chairman of Telefonica; and Carlos Mas, President of PWC, Spain diversity in terms of employing people with disabilities or targeting them as customers. O2 Ireland has supported the initiative from the very beginning. ACCESS ALL AREAS The Access, Care & Mobility Expo 2011 will take place on Friday 10th and Saturday 11th June, 2011, in City West Hotel Convention Centre, Saggart, Co Dublin. Now in its 9th year, the Access, Care & Mobility Expo has become an important event in the calendar of events for the disability sector. The Access, Care & Mobility Expo will showcase hundreds of products to aid independent living, including wheelchairs, scooters, adapted vehicles, pressure relieving beds, walking aids, recliner chairs, stairlifts, access equipment and daily living aids. The exhibition gives people the opportunity to meet manufacturers and suppliers and get first hand advice and guidance on their products and services. This year, the Access, Care & Mobility Expo is joining forces with the Disabled Drivers Association of Ireland which is holding its annual conference in the same venue. All of this will take place in an environment which offers Last year’s Access, Care & Mobility Expo you opportunities to liaise with other people, families and carers and with other experts and professionals who can advise you, whatever your needs may be. The Exhibition will run from 10am – 5pm each day and entry is free-of-charge. For further details visit: www.accessandmobility.ie RTE SERIES FOCUSES ON DISABILITY RTE is currently running a new series on RTE Radio 1 called A Life Less Ordinary. The series profiles a single person with a disability each week. The programmes are broadcast on Friday nights at 10.02pm, and the podcasts can be found at http://www.rte.ie/radio1/podcast/podcast_alifelessordinary.xml if you'd like to catch up with any ones you've missed. 58 spokeout_Spring_11-p59:Layout 1 03/03/2011 16:19 Page 59 news GENIO PROJECT Genio funding enables nationwide roll-out of Enhanced Person Centred Process project WA has secured funding from the Genio Trust which will enable the implementation of its Enhanced Person Centred Process project across all 57 Resource and Outreach Centres. The Enhanced Person Centred Process project has already been piloted in Galway, Roscommon, Mayo, Sligo, Donegal, Limerick, Clare and North Tipperary. The aim of the pilot was to develop processes that support individual service users to achieve their personal goals. One of the service users who benefited from the pilot was Joe Treacy, who is studying part-time for a FETAC certificate in computers at IWA’s Tuam Resource and Outreach Centre. Last year Joe identified the goal of getting a job at his local swimming pool as a way to achieve greater freedom and independence. “It’s very important to me to be independent,” says Joe. I like to be earning and to have my own money to spend.” Breege Creaven, a PA with Tuam Resource Centre, supported Joe as he worked towards his goal. “Breege helped me to decide how to go about applying for the job and showing what my skills were. I’d done some work with the swimming pool before and I wanted to continue in a new job with more responsibilities. She helped me to work out how I wanted to approach it.” During the application period, Joe decided to volunteer to work in the office in Tuam Resource Centre in order to develop his communication skills and confidence for his new job. “I built up my confidence on the phone and taking messages so I really felt I could do the job.” Joe was successful in getting a part-time job at the swimming pool, and is also continuing his studies at Tuam Resource Centre. I Joe Treacy Breege feels that the contact service is a very positive way of working with members. “You can build a good relationship with someone and really get to know what they want out of life. People come to you with things that are ‘outside the box’ that they might never have raised before.” The Enhanced Person Centred Process provides a structured way in which staff like Breege can work with service users to enable them to achieve their goals, facilitating social gain, well being, independence and participation in the community. By engaging with members in this structured way, staff in IWA centres will be able to respond to individual needs by offering new supports or services. Four IWA Contact Facilitators have been appointed – one for each region – and over the coming year they will be offering Enhanced Person Centred Process training to staff at IWA centres around the country. IWA is also currently implementing an operations manual for Resource and Outreach Centres with the aim of ensuring a national standard for services and assisting staff to support services users. CUISLE HOLIDAY CENTRE LAUNCHES NEW WEBSITE Cuisle Holiday Centre, IWA’s national holiday centre, is delighted to launch its new website. Designed by IWA’s graphic designer, Garreth Greene, the new and improved version of Cuisle’s popular website is user friendly and includes detailed information on the facilities available to guests, including the internet kiosk and the new leisure suite with Jacuzzi and sauna. The site also enables you to make an enquiry or book your accommodation online. Visit the site at www.cuisle.com to see the latest updates and special offers. Remember, whether you are visiting as an individual or group, Cuisle can design a holiday to suit your requirements. spokeout 59 spokeout_Spring_11-p60-62:Layout 1 03/03/2011 16:21 Page 60 ACHIEVEMENTS BABUSHKA BOXES FROM CLANE RESOURCE CENTRE Members of Clane Resource and Outreach Centre, with the assistance of centre staff, packed and presented 28 Babushka boxes to Pashli, an organisation working in Belarus with people affected by the Chernobyl disaster. In previous years, members donated to a children’s charity shoe box appeal at Christmas time. Following a presentation made by IWA staff member Paul Condron and his wife, who are regular volunteers with Pashli www.pashli.org, the members decided to support the charity. The boxes containing gloves, scarves, socks, toothpaste, toothbrushes etc., are given to older people in homes in Belarus. SKILL AWARDS FOR CUISLE STAFF Seventeen staff from Cuisle successfully completed the SKILL Programme in 2010 and received their awards at a ceremony in the Galway Bay Hotel. SKILL training is funded specifically to educate, train and develop support staff in the Irish Health Services. The award acknowledges this expertise through national certification with the Further Education and Training Awards Council. FUNDRAISING IWA HORSE CANTERS AWAY AT CHRISTMAS AUCTION An exceptionally beautiful traditional rocking horse, kindly donated by the joinery unit of Wheatfield Prison, Dublin, to Clontarf Resource and Outreach Centre, was auctioned by Whytes Auctioneers & Valuers, Dublin, in their ‘Art for Christmas’ auction, raising a significant €1,680. A presentation of the cheque took place in the centre in January. Pictured left: Pat O’Sullivan, Industrial Division, Wheatfield Prison and Sean O’Reilly, Assistant Governor, Wheatfield Prison, look on as members Yvonne O’Rourke and Ann Ryan accept the cheque from Ian Whyte, Whyte’s Auctioneers Below: The rocking horse 60 spokeout_Spring_11-p60-62:Layout 1 03/03/2011 16:22 Page 61 snapshots EVENTS TIPPERARY TOWN BRANCH HOSTS CHRISTMAS PARTY Mary Walsh and Lorraine Doherty, Tipperary Town Branch members, attended the branch party hosted for 150 members in the Ballykisteen Hotel and Golf Resort, Co Tipperary CUISLE ART EXHIBITION Mary Walsh and Lorraine Doherty at the Tipperary Branch IWA IWA member and artist Anne O’Connell launched her exhibition titled ‘Capturing Now’ last October in Cuisle. Anne’s ‘cubic surrealism’ has been likened to Picasso’s, and is evident in her use of vivid colour, strokes and subject detail. A VISIT TO ÁRAS AN UACHTARÁIN Pictured (l-r): President Mary McAleese with Damien Gordon and Martin Tarmey, Kenagh IWA A group of service users, branch members and staff from Kenagh Resource and Outreach Centre, Longford, visited Áras an Uachtaráin at the end of January. A decoupage picture and St Brigid’s Cross made by the service users were presented to President McAleese during the visit. Pictured: Peter Connolly (IWA Galway); Darren Cranston (ACC); Eoghan Gavigan (ACC); Angela Gavigan (Service Coordinator, Galway ROC); and Bob Ole (ACC) at Cúl Árd ACC STAFF VOLUNTEER A DAY WITH IWA IN GALWAY Staff from ACC Galway took part in a day’s volunteering at various IWA locations in Galway. Work included window cleaning and weeding the gardens at Coillte Merlin, as well as planting shrubs and arranging hanging baskets at Cúl Árd. The volunteers also cleaned the buses at the Galway Resource and Outreach Centre and enjoyed the experience of giving back to the community. Pictured: ACC staff Hilda Hewson, Nuala Shaw, and Aoife Waters hard at work at Coillte Merlin spokeout 61 spokeout_Spring_11-p60-62:Layout 1 03/03/2011 16:22 Page 62 snapshots COOKERY CLASSES IN GALWAY RESOURCE CENTRE Members of Galway Resource and Outreach Centre took part in a five-week cookery course, organised and run by volunteer and home economics teacher Anita Rourke. The basic skills included cooking a main course and dessert. Feedback was extremely positive and it is hoped to run a follow up advanced course. Pictured back (l-r): Kathleen Mathews, Barbara Kelly, and Anne Connolly. Front (l-r): Madeline Maloney, David Farrell, Anita Rourke (teacher), Kathleen Cunningham, and Anne Doyle CORK REBEL WHEELERS Rebel Wheelers Junior Sports Club meets weekly on Saturday at the Cope Foundation, Montenotte, and the club is very grateful for the use of the foundation’s facilities. All club activities are organised and overseen by parents and guardians of the children attending, and new members and their families are most welcome. In July, a very successful four-day summer camp was hosted. Representatives from the FAI and coaches from The Paralympic Council of Ireland attended, sharing their expertise and giving great support and encouragement. Contact Jean on 086 317 6229 for more information. GLENNON’S INSURANCE WINNER Philip Quinlan from Dublin was the winner of the most recent Glennon’s Insurance Draw for a year’s free car insurance. Anne Lowry, IWA Area Manager (Dublin North), is pictured as she presents Philip with the cheque. The next draw, which is open to IWA members, their spouses/ partners, and their carers, is for those seeking quotations through Glennon during the months of April, May and June. To find out more about IWA Car and Home Insurance Schemes, contact Glennon on tel: 1890 812 221or email: [email protected] 62 spokeout_Spring_11-p63:Layout 1 03/03/2011 16:24 Page 63 crossword Crossword To be in with a chance of winning one of two €50 ‘One4all’ gift tokens, which can be used in 4,500 outlets nationwide, simply send your completed crossword along with your name and address to: Spokeout Crossword, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3. Correct entries will be entered into a draw on Friday, May 6th, 2011 and two winners drawn. Crossword No. 11 by Gordius Across 1. Sever. (3) 3. Is it one’s skill at motoring or golf teeing-off that is examined here? (7,4) 8. Complained. (6) 9. In twenty-four hours time. (8) 10. An attack. (5) 11. ‘Ink’ for a printer. (5) 13. Warning device. (5) 15. See 5 down. 16. South American river, or one of the Wombles. (7) 20. The God of Islam. (5) 21. Vote into office. (5) 23. The words of a song. (5) 24. How I stop Tim being one who looks on the bright side. (8) 25. Usually yellow fruit. (6) 26. It’s a shocking way to injure someone! (11) 27. Possessed. (3) Down 1. Cop-on not enjoyed by the aristocracy? (6,5) 2. Broadcast. (8) 3. Resided. (5) 4. Papal state. (7) 5 and 15 across. Housing developments bequeathed by phantoms? (5,7) 6. Message or minor chore. (6) 7. Pull another vehicle. (3) 12, 17 down and 19 down. ROC in full, one of the 68 run by IWA. (8,3,8,6) 13. Place of combat. (5) 14. Gaiety, glee. (5) 17. See 12 down. 18. It claps for the man-made substance. (7) 19. See 12 down. 22. Entice. (5) 23. Depart. (5) 24. Be in debt. (3) CROSSWORD WINNERS FOR WINTER 2010 M Whyte, Clondalkin, Co Dublin; S Ryle, Belgooley, Co Cork YOUR VIEWS Got something to say? Write to us at Spokeout, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3 Parking in Drogheda Francis Martin, who wrote in to our winter issue, is not alone in having difficulty ascertaining where Disabled Person’s Permit holders can park free-of-charge in Drogheda. It seems the root of the problem is confusion over which spaces belong to the local authority and which belong to Drogheda Port Company. Dear Editor I read the letter in the winter issue in relation to parking in Drogheda. I live just outside Drogheda and use a wheelchair for longer distances. I believe the person who wrote in parked on the North Quays in Drogheda, part of which is managed by the Drogheda Port Company. The Port Company has its own traffic wardens and only allows disabled permit parking in the designated places, of which there are approximately three on the quays. The parking on the quays, which is from the pedestrian crossing to the bridge, is managed by the local council. The only way to be certain which area you are in is by looking at the parking signs. I got caught once a few years ago and even after appealing still had to pay €21. Yours John Byrne, Co Louth Dear Editor Having read the letter about parking in Drogheda, I believe the place where Francis Martin parked belongs to the Drogheda Port Company. You can park anywhere in the town except at the dock area. I had a run in with the warden myself; he demanded to see my pass and was very rude. I hope this clears up the matter for anyone visiting Drogheda. Yours Des Darragh, Balbriggan THE VIEWS EXPRESSED ON THIS PAGE ARE THE VIEWS OF INDIVIDUAL READERS AND DO NOT NECESSARILY REPRESENT THE VIEWS OF IWA spokeout 63 spokeout_Spring_11-p64:Layout 1 03/03/2011 16:25 Page 64 small ads small ads FOR SALE If you have an item for sale, a holiday contact or a personal advert, please send approx 25 words to Small ads, Spokeout, IWA, Blackheath Drive, Clontarf, Dublin 3. Small ads are free-of-charge to members. Adverts for accessible holiday accommodation and services are €20.00 (cheques or postal orders payable to IWA Ltd). Wheelchairs, scooters, adaptive equipment and clothing Enigma Energi power chair Easy to charge, speed adjust, battery gauge, joystick, never used. €1,500. Tel: 086 387 3759 (Dublin) Cars and accessories 2000 Nissan Vanette diesel Wheelchair lift to rear, clamping system, 4 seats, 49,000 miles, NCT 2012. €2,600. Tel: 086 169 2630 (Dublin) Reck Motomed Viva 2 Perfect working order, very little used. €2,500 ono. Tel: 087 936 3002 (Dublin) Ricon lift Can be seen working. Sell €2,500 ono. Tel: 087 644 6339 (Kerry) Passenger swivel seat Suits all cars, one year old, perfect condition. Cost €1,250, sell €550. Tel: 086 081 1732 (Laois) Nevada Rise & Recline chair Never used. Cost €950, sell €300. Tel: 061 316 351 (Limerick) Mercury Neo 4 mobility scooter Practically new, only charged five or six times. €800. Tel: 086 373 4969 (Dublin) 2008 Volkswagen Shuttle 2.5 Ricon lift fitted. €24,000. Tel: 087 644 6339 (Kerry) Swivel seat €250. Tel: 087 644 6339 (Kerry) Road Knight mobility scooter €200. Tel: 085 174 0797 (Donegal) 2006 Mazda 5 1.8 petrol Seven seater, 63,000kms. €10,800. Tel: 086 314 7280 (Cork) Mobility P4 AEM power chair Four years old. €1,750. Tel: 087 676 9875 (Kildare) Car boot hoist €500 ono. Tel: 086 604 3922 (Cork) 2003 Fiat Multipla Ramp to rear, disabled passenger travels beside driver, two further passenger seats, excellent condition. €6,000. Tel: 053 938 8643 (Wexford) Eco 3 electric scooter Folds easily for transporting in boot of car, 18 months old, seldom used. €650. Tel: 086 604 3922 (Cork) 20” manual wheelchair Small wheels, four months old, used twice. €300 ono. Tel: 086 604 3922 (Cork) 18” manual wheelchair Small wheels, 18 months old. €100 ono. Tel: 086 604 3922 (Cork) Portable ramps One pair, 6’ long, fold in half, never used. €200 ono. Tel: 086 604 3922 (Cork) Power chair Hardly used, two 6V batteries included. Cost €17,000, sell €800. Tel: 087 670 0828 (Wicklow) Property for rent Portugal Fully wheelchair accessible villa, 20 minutes drive from Faro Airport, air conditioning, three bedrooms, sleeps six, large private gardens and pool. Tel: 087 412 3756 Services Leaving Certificate 2011 and Junior Certificate 2011 Are you studying for maths or science subjects in these exams? Online website www.leavingandjuniorcertan swers.com can help. Whether you are attending school or not – ideal for those unable to attend! CAREER OPPORTUNITIES IN IWA Interested in working with the Irish Wheelchair Association? If so, make sure to regularly visit our website (www.iwa.ie) for the latest vacancies. IWA is an equal opportunities employer. 64